Exceptional Family Magazine Winter/Spring 2024

Family Ky Exceptional

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2024 WINTER/SPRING

425 Statewide Resource Listings

 ARMS II Advocates Address Waiver Waiting Lists

 FUN FOR EVERYONE Hillview Opens Accessible Playground

 DONNA FOX Yes Group Grows Under CCDD Member's Leadership

Tianna Wright's daughter Chrissy Taylor, 6, is already a TikTok sensation Photo by: Robin Allen Photography

Commonwealth Council on Developmental Disabilities

Independence Integration Inclusion

WINTER/SPRING

2024

Independence, Integration, Inclusion ARMS II Tackles Medicaid Waiver Waiting Lists More Than 12,000 Kentuckians Are On Waiting Lists for Three Waivers

4 Letter From the CCDD

Executive Director Johnny Callebs Explains The Importance of the CCDD.

5 RIP Judy Heumann

CCDD Member Amy Smith Remembers A Legendary Self-Advocate.

6 Meet the CCDD

Learn How You Can Advocate for Change

By Becoming a Member of the Council.

8 Fun for Everyone

City of Hillview in Bullitt County Opens a Brightly Colored, All-Inclusive Playground.

Advocacy Works The Commonwealth Council on Developmental Disabilities is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $1,195,270 with 84 percent funded by ACL/HHS and $192,300 and 16 percent funded by non-federal-government source(s). The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by ACL/HHS, or the U.S. Government.

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For additional free copies, Call (859) 494-1140 or Email johnplynch1950@gmail.com

Editor...................................John Lynch Graphic Artist........................Nick Farr Contact Info: (859) 494-1140 / johnplynch1950@gmail.com 2

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10 Donna Fox

YES Group Grows Under Leadership of CCDD Member and Longtime Self-Advocate.

12 A 6-Year-Old Celebrity Chrissy Taylor of Lexington Is Already a TikTok Sensation.

16 Resource List

From Autism to Vision Issues, Statewide List Provides the Information You Need. ¿Hablas Espanol?

For the Spanish version of the magazine, visit www.lexingtonfamily.com “Exceptional Family KY” is published by the Commonwealth Council on Developmental Disabilities 1024 Capital Center Dr., Frankfort, Kentucky 40601 (502) 564-7841 • www.CCDD.KY.gov

Independence JOIN OUR TEAM integration Inclusion The Council consists of people like you. Members include people with developmental disabilities plus family members and guardians of people with developmental disabilities.

The mission of the Commonwealth Council on Developmental Disabilities is to create systemic change in Kentucky that empowers individuals to achieve full citizenship and inclusion in the community through education, capacity building and advocacy.

Come Join Us! If you want to affect policy, influence legislators and advocate for change, the CCDD is the place for you. Call today to learn how you can make a difference.

(877) 367-5332

www.ccdd.ky.gov

Letter

Advocacy Works

From the CCDD

By Johnny Callebs

I

The Importance of the CCDD

In my three decades of That’s why it’s important that they increasing access and inclusion in all work in the field of disabilhave a seat at the table and have aspects of life. ity, I have appreciated the their voices heard.

Recent good works by the Council Commonwealth Council on Another benefit of membership on include its advocacy for the recent Developmental Disabilities the Council is validation. Whatever passage of a law by the state legislaand its contributions to the struggles you’re facing, your fellow ture that bans discrimination against people of Kentucky.

Council members are most likely facpeople with disabilities when it Now that I’m the CCDD Executive ing the same ones. comes to organ transplants.

Director, I respect the Council’s work There is comfort, I think, in being Currently, the Council is advocateven more. seen and heard by like-minded people. ing for the rights and protections of First, the Council is a member-drivCouncil members not only advocate parents who have disabilities. en organization. My The goal is to staff and I work for remove bias from all the Council, which aspects of parentis composed of 16 ing such as divorce, If you are a self-advocate or family member of a advocates and selfadoption and child person who has a developmental disability and are advocates appointed custody. interested in applying to be on the Council, please fill by the Governor, In addition, the along with 10 state Council is well aware out the application here: agency representaof the unconscionaGovernor’s Application for Boards and Commissions tives. bly long wait lists for https://governor.ky.gov/services/application-forWhat I like about waiver services. boards-and-commissions the Council is that Nearly 12,000 of people with disour fellow KentuckiWe suggest that you add a resume or statement of abilities and their ans are stuck on wait families have the lists. The Michelle interest to your application. Please follow up with loudest voice on the P. Waiver wait list Carol Tudor at Carol.Tudor@ky.gov Council. alone is currently That’s why we 168 years, assuming as a team, they form friendships with 50 people are funded per year and no need as many self-advocates on the each other.

Council as possible. one else joins the wait list.

Fellow Council members contact The Council is made up of people Much work needs to be done for each other regularly to discuss advowith lived experience. They know the state’s largest minority group – cacy goals or sometimes just to talk. best about the challenges and barripeople with disabilities.

The Council represents a broad ers people with disabilities face when That’s why we need you to inquire range of people with disabilities, it comes to transportation, health today about joining the Council and but everyone shares the same goal – care, employment, etc. helping us fight the good fight. n

HOW TO BECOME A MEMBER

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Advocacy Works

December 18, 1947 – March 4, 2023

REMEMBERING JUDY HEUMANN

I

By Amy Smith

n March 2023, the disability rights movement lost one of its greatest advocates, Judy Heumann, known as the “Mother of the Disability Rights Movement.” She was 75.

Although she was recognized for her leadership during the historic Section 504 sit-in nearly 50 years ago, her entire life was spent advocating for accessibility, inclusion, and equal opportunities for people with disabilities.

Judy, who grew up in Brooklyn, contracted polio at 2 years old and lost her ability to walk. She was denied entrance to Kindergarten because her wheelchair was considered a “fire hazard.”

Eventually she found community at Camp Jened, a summer camp in upstate New York for disabled individuals. This experience sparked her passion for lifelong advocacy.

Judy overcame obstacles to become the first wheelchair user to teach in New York City.

Initially, she was denied a teaching license by the New York Board of Education.

But she fought back and won a lawsuit to gain her license.

Judy worked as an elementary school teacher and devoted time to an advocacy group she co-founded, Disabled in Action.

In 1977, tensions were building around Section 504 of the 1973 Rehabilitation Act. Activists organized a meeting with the regional director of the Health, Education, and Welfare Department to discuss Section 504.

When the director admitted he was unaware of 504’s existence, the group staged a 25-day sit-in at the San Francisco federal building.

Donna Fox, right, of the CCDD met Judy Heumann, left, at the national conference of the National Council on Independent Living in Washington, D.C., in 2018.

Donna greatly admired Heumann, saying: “Judy taught me that even as a person with a disability, I have a voice.”

Despite the difficulty of such a long commitment, Judy remained aware of the sacrifice advocacy required. The occupation sent a clear message.

“Through the sit-in, we turned ourselves from being oppressed individuals into being empowered people,” Judy wrote in her memoir.

Judy continued advocating in various roles. She was the co-founder of the World Institute on Disability, the Assistant Secretary of the Office of Special Education and Rehabilitation Services, and the first Director of the Department of Disability Services.

Judy’s life was an example of advocacy in action that inspired people with disabilities all over.

Donna Fox, a member of Commonwealth Council on Developmental Disabilities, saw Judy as an icon in the disability community.

“As a fan and a student of Judy’s teachings, I learned to admire her spunk, fire, determination and will to never surrender,” Fox said.

“She faced serious discrimination, remained diligent and refused to lose.

Judy taught me that even as a person

with a disability I have a voice, I have power and that sometimes we will have to raise a fuss in order to win.”

A

s the mother of an autistic child, I read Judy’s memoir and was inspired by the woman who fought back.

She was unafraid to stand up and use her voice to make a difference.

She didn’t shy away from the chance to advance disability rights, even if it meant taking risks.

Judy had a clear vision of what our world could look like when everyone had a seat at the table.

Although there is much work to be done, I believe we can all be a part of the positive change she envisioned.

May we honor her memory as we carry on Judy’s tireless work. Her voice mattered. Your voice matters.

You can read more about Judy in her memoir titled, “Being Heumann: An Unrepentant Memoir of a Disability Rights Activist” (2020). Her story also was featured in the documentary film, “Crip Camp: A Disability Revolution.”

Amy Smith of Frankfort is the mother of a 17-year-old son with autism. She is a member of the CCDD and the founder of a local autism support group in Frankfort. n 2024 Exceptional Family KY

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Advocacy Works

Meet the CCDD Staff

Johnny Callebs - Executive Director / Johnny.Callebs@ky.gov | 502-564-7841 Johnny joined the Council on April 1, 2023. He serves as the main contact for the Council. Johnny manages and directs Council activities based on the goals and objectives in compliance with federal laws and requirements.

He leads Council staff in implementing the Five Year Plan and assists in developing the Council’s public policy, advocacy agenda and strategies, state and federal government relations and other operations. He also manages the Council’s budget and hires and manages the Council staff.

Johnny brings a wealth of experience to the Council, including working with citizen boards, advocating and working with and for individuals with intellectual and developmental disabilities, their families and their support systems.

Vicki Goins - Federal Financial Manager / Vicki.Goins@ky.gov | 502-782-8604 Vicki first joined the Council in 1999. She left in 2006 to work for the State Budget Office and returned to the Council in 2018. As the Federal Financial Manager, Vicki manages contracts, tracks the Council’s budget and assures compliance with grant management regulations. She has worked in the disabilities field since 1993.

Jennifer Hicks - Program Director / Jennifer.Hicks@ky.gov | 502-782-8608 Jen manages federal planning and reporting, including the Five Year Plan, State Plan Amendments, Annual Program Performance Report, and Annual Work Plans. She facilitates Council work teams to help them achieve the Five Year Plan objectives. Jen has been with the Council since 2016. Previously, she worked in the State ADA office and has over 10 years’ experience in the disability field. She holds the national professional certification ADA Coordinators.

Justin Jeter - Public Policy Coordinator / Justin.Jeter@ky.gov | 502-782-0696 Justin has been with the Council since 2021. He helps develop relationships with Kentucky’s legislature, monitors potential legislation, and shares policy updates with the Council and advocates. He has a sister-in-law who has Down syndrome and is passionate about encouraging state lawmakers to pay attention to disability rights.

Nicole Maher - Advocacy & Communications Director / Nicole.Maher@ky.gov | 502-782-8616 Nicole is the Council’s coordinator for advocacy initiatives. She facilitates the Self-Advocacy work team to achieve the goals and objectives in the Five Year Plan. She also facilitates the Kentucky Partners in Policymaking program.

She shares advocacy issues via social media and is responsible for the Council’s monthly newsletter.

A UK graduate, Nicole has been with the Council since 2018 and has worked in the disability field for more than 20 years in various capacities. She has a daughter who has Down syndrome.

Tim Moore - Front Desk Manager / Tim.Moore@ky.gov | 502-564-7841 Tim has been with the Council since 2011. He serves as the front desk receptionist and also assists organizations in accessibility concerns by reviewing websites and documents. Tim completes special projects for staff and records meeting minutes when needed.

Carol Ann Tudor - Policy Analyst & Operations / Carol.Tudor@ky.gov | 502-782-8606 Carol Ann has been with the Council since 2005. She serves as the main contact for inquiries, including submission of funding requests and requests for publications. She oversees office operations and provides administrative and clerical support.

She coordinates meeting logistics and supports Council members in making meeting arrangements and reimbursement. She is staff to the Council Affairs Committee.

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Reader Survey

WINNER!!!

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Be among the first 50 to enter a drawing for $250 To fill out the form online, scan the QR Code or simply follow the link below

Sarah Richardson

T

he winner of a $250 cash prize in the latest Reader Survey contest for this magazine is Sarah Richardson of Shelbyville.

Richardson, a 2004 UK graduate, is the interim Executive Director of the Spina Bifida Assn. of Kentucky, an agency she has served for six years.

Richardson has three daughters: Olivia, 12, Avery, 9, and Emery, 7. Avery was born with spina bifida and has undergone eight surgeries, including one on the day she was born.

Ten days later, she underwent brain surgery. Richardson didn’t hold Avery until she was 14 days old.

Avery uses braces but is ambulatory and doing well.

Richardson is an avid reader of this magazine, especially the resource directory. “Having a place that lists so many resources that are vital to the community is important.

“I’ve seen several people that I know on the cover of the magazine.

It’s great to see so many people affected by disabilities living their best lives.” n

www.surveymonkey.com/r/2MHCVBG

Having trouble filling out or accessing the form?

Contact John Lynch at 859-494-1140 or email johnplynch1950@gmail.com

Quarterly Council Meetings

• 2024: Feb. 9; May 24; Aug. 16, Nov. 8 For location information, email the CCDD at ccdd@ky.gov All Council meetings are open to the public in accordance with the Kentucky Open Meetings Law. The mission of the Commonwealth Council on Developmental Disabilities is to create systemic change in Kentucky that empowers individuals to achieve full citizenship and inclusion in the community through education, capacity building and advocacy.

www.CCDD.KY.gov 2024 Exceptional Family KY

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Advocacy Works

FUN for EVERYONE New Accessible Playground in Bullitt County Draws Rave Reviews

T

By John Lynch

en years ago Serena Jacobs spoke at an event to raise money for an all-inclusive playground. Jacobs, president of the ARC of Greater Louisville said, “Imagine a world where every child can play together without any barriers.”

Today, the folks of Hillview, a small Bullitt County town of 10,000 next to Louisville, no longer have to imagine. That playground was officially opened May 20, 2023.

And it’s quite a sight to behold. Big and bright, all in green and yellow colors, the playground sits on a half-acre lot. It includes a merry-go-round, teeter totter, slides including a giant slide, a wheelchair swing with two seats big enough for adults, and four picnic tables with rounded benches.

And all of it is completely accessible.

The Arc of Greater Louisville spearheaded the fund-raising to pay the $667,000 price tag. Candy sales, bunko games and a masquerade gala got the group halfway to the goal, and then the Hillview city council donated more than $350,000 to cover the remaining costs.

The Bullitt County school board provided the land, charging $1 a year in rent.

After 10 years of dreaming and fundraising, Jacobs still has trouble believing the playground is a reality.

“I go over there and just touch it. It doesn’t seem totally real,” she said. “There were times during Covid when I didn’t think we were going to make it. Now, I’m just in 8

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Grayson Wentworth, above, enjoys two different features of the Hillview playground.

Right, Morgan Dorsey rolls onto the wheelchair swing.

awe and I’m really proud that it’s there.”

Jacobs has always had a heart for the disability community, starting when she served as a personal aide for a teenage neighbor.

Currently, she is the activity director at Alternative Adult Day Health Care Center in Bullitt County. Previously, she worked with high school special education classes.

“That community has always been a passion of mine,” she said. “When I saw that kids needed a place to play, an accessible playground became a dream of mine.”

To get the ball rolling, Jacobs called Sherri Brothers, then the executive director of The Arc of Kentucky who connected her with Crimson Claycomb, founder of Kendyl and Friends Foundation.

The Foundation is named after Crimson’s daughter and is dedicated to helping communities build accessible playgrounds like the one Crimson’s group built at Anderson Dean Park in Mercer County.

(For more on accessible playgrounds in Ken-

tucky, please see story Page 9).

“Crimson gave me the road map,” Jacobs said.

C

laycomb connected Jacobs with Miracle Playgrounds of KY & TN, which builds accessible playgrounds.

Jacobs then started the fund-raising campaign.

Working closely with Jacobs were Kim Whitlock, a member of both The Arc of Greater Louisville and the Hillview city council; and Kim Dorsey, a University of Louisville employee and the single parent of Morgan, Born with cerebral palsy, Morgan Dorsey, 27, has mobility issues and uses a wheelchair. In many ways she is the focus of the whole accessible playground.

The women involved – Serena Jacobs and Kim Whitlock – had all known Morgan in different phases of her life, and had become friends with Kim and Morgan Dorsey through that connection.”

Advocacy Works

The green and yellow colors make the new all-inclusive playground in Hillview an instant landmark in the community.

When Morgan attended Freedom Elementary in Hillview her aide was Whitlock.

When Morgan moved to North Bullitt High, Whitlock went with her.

And Serena Jacobs works with Morgan at adult day care.

“Kim (Whitlock) and Morgan call themselves soul sisters for life,” Kim Dorsey said.

The team behind the new playground praise the work of Jim Eadens, mayor of Hillview for the past 21 years.

“He has been so supportive of us,” Jacobs said, noting that the mayor arranged for The Arc of Greater Louisville to have an office in the city’s new Jim Eadens Resource Center.

The Center includes space for Court Appointed Special Advocates (CASA); Goodwill Industries; The Center for Women and Families; Isaiah House, a drug counseling center; a meeting room for senior citizens; and a 3,000 square foot food pantry.

“Kim (Whitlock) and Serena had worked really hard and have big hearts so we wanted to support them,” Eadens said.

“I think the new playground is a great asset to the community. It provides kids whatever their abilities a place where they can play just like other kids.”

And that’s what has happened ever since the playground opened.

“My heart just about bursts every time I drive past it or see the playground,” Whitlock said.

“I’ll drive over there and sit on the bench and watch the kids. It’s wonderful to see.

I see kids making friends there all the time.”

Kim Dorsey and her daughter Morgan live within minutes of the playground and use it regularly.

“Morgan absolutely loves it,” Kim Dorsey said. “She had never been able to use a playground before.

“The first time I saw her going down the slide and seeing the excitement she had, feeling the excitement I felt, my eyes were leaking tears.

“Just to see the smile on my daughter’s face made this all worth it.” n

Accessible Playgrounds in Kentucky The following list contains playgrounds that are 100% all inclusive. However, this list may not be comprehensive. If you know of all-inclusive playgrounds not listed here, please contact Nicole Maher at nicole.maher@ky.gov and we will update our list. Thanks.

Fern Creek Park 9100 Fern Creek Road Louisville / Jefferson County

Anderson Dean Park 1501 Louisville Road Harrodsburg / Mercer County

Kendyl & Friends Foundation has consulted on the following allinclusive playgrounds

City-County Park 402 Park Drive Nicholasville / Jessamine County

www. kendylandfriendsfoundation.org

Burgin Independent School 440 East Main Street Burgin / Mercer County

Liberty Elementary 75 College Street Liberty / Casey County

The Pavilion 140 Pavilion Drive Georgetown / Scott County

Kendyl & Friends Foundation is working on the following allinclusive playground projects:

Kid SpOt 50 Gene Cash Road Campbellsville / Taylor County

Hogsett Primary School 300 Waveland Avenue Danville / Boyle County

Berea Community School 2 Pirate Parkway Berea / Madison County

Westside Community Methodist Church 2875 Highway 127 Hustonville / Lincoln County

Lancaster City Park 238 S Campbell Street Lancaster / Garrard County Arc of Greater Louisville Area Hillview Public Park 298 Prairie Drive Louisville / Bullitt County

Martin County: Site TBA Boyle County Plans in place to build allinclusive playground, community center, baseball field, indoor and outdoor aquatic center and gymnasium on 5-acre site. n 2024 Exceptional Family KY

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Advocacy Works

YES INDEED! CCDD Member Donna Fox Has Led YES GROUP to HUGE Growth

D

By John Lynch

uring a lifetime of defying expectations and advocating for herself and others, Donna Fox, 58, of Louisville is probably best known for her work with the YES (Young Empowered Self-Advocates) Group.

Fox was ideally suited to lead this program based on her own disability and her experiences as an advocate.

Diagnosed with juvenile arthritis at the age of 5, Fox underwent eight surgeries by the time she was 18, including a rare jaw replacement operation. Still, she earned a sociology degree from the University of Louisville, married and had two children, and has three grandchildren.

As a single mom, she worked in the travel and hospitality business in Louisville before she became a volunteer in 1998 for the Arthritis Foundation. That changed Fox’s life and she’s been changing lives ever since.

“At that time, I attended an arthritis advocacy conference in Washington, D.C., and that was my “Aha” moment. All of a sudden, I realized I wasn’t alone,” Fox said.

When she returned home, she wanted parents of children with juvenile arthritis to know that they were not alone. She asked herself, “What can we do for kids with arthritis?”

Her answer was FACES (Facing Arthritis With Compassion, Encouragement and Support). Fox came up with the name, ran the regular support group meetings, oversaw the outreach program and supervised 10

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club events like a family carnival.

“We wanted to unite families,” Fox said. “At the carnival, for instance, while kids were having fun, parents could connect with each other.”

She then was a founding board member of a support group for younger adults with arthritis called Arthritis Introspective.

In 2010, Fox was hired for a parttime position as Youth Transition Coordinator with the Center for Accessible Living in Louisville. Her first assignment? The YES Group.

F

ox took over a program with a powerful formula: Young people with disabilities meet regularly with teachers/mentors/role models who are people with disabilities themselves.

Donna Fox watches teacher Samantha McGiveney, left, work with student Ken’nell Churchill at Churchill Park High in Louisville.

“When young people see others who are like themselves who are out in the world, holding jobs etc., that makes things very real for them,” Fox said.

The only problem with the program was its size.

At the time, YES Group consisted of no more than five people aged 16 to 21, and meetings took place in the community in the evening. How could the group grow?

When Fox served as guest speaker at a community based instruction event for special education students at Pleasure Ridge Park High, the teacher, Whitney Vowels, was impressed with Fox’s presentation.

“She was so incredible,” said Vowels, who has been a teacher for 36 years. “When I saw the respect she gave these students, I fell in love with what she was doing.

“I told her this was the greatest thing but families can’t get there in the evenings. Can you meet during school hours?”

Fox replied: “What if we came to you?”

Said Vowels: “Oh my lord, that’s like a gift.”

Fox got to work, convinced CAL and Jefferson County schools to launch a pilot program at two high schools, and the YES Group was off and running.

The pilot project included 30 students. By 2019, right before Covid, YES was in 12 high schools, reaching more than 120 students.

After Covid, Fox and the YES program eventually moved to Options Unlimited in Shepherdsville in July 2022. Since then, YES has mushroomed to 20 high schools (17 in Jefferson County and all three Bullitt County high schools), embracing 335 students.

Fox now has an assistant, Stephanie Hickey, who is 43, has cerebral palsy and worked with Fox at CAL. The program also has 16 team members, all of whom are volunteers and people with disabilities. Many of the mentors are former students such as Tyler Buster, 23, of Louisville.

Buster has autism and Asperger’s Syndrome, works at Dick’s Sporting Goods, and is a 2020 graduate of Pleasure Ridge Park High where he participated in the YES program.

YES taught him much about self-advocacy, and now he is helping high school students as a YES volunteer.

“Being a volunteer is something I wanted to do as long as I’ve been with YES,” Buster said. “The program helped me become a better person. By getting people to see what I went through, I can lead by example.

“I can help students gain independence, and help them be selfaware and have self-determination.”

Comments like that reassure Brian Stinnett, the executive director at Options Unlimited, who was new to YES when he took the job in 2022. Now, he’s one of the program’s biggest cheerleaders.

“It’s a wonderful program,” he said, “and when Donna and I get together to talk about our vision for the program, we feed off each other. We get each other motivated and get cold chills

together.

“Donna’s been a blessing. At Jefferson County schools, they just speak so highly of her. They love having her in their schools.”

Vowels, the special education teacher at PRP High, was there at the beginning and is still with the YES program.

“We are still going strong and so glad that Donna still has us,” she said. “I can’t speak highly enough about her. She puts everything she’s got into what she believes in.”

Hickey, Fox’s assistant, echoes those sentiments, saying her ability to listen to the students and adapt the program to their needs are crucial to the program’s success.

“Donna is willing to take feedback and see what works, and then adapt and change” she said. “She pays attention to what really animates students.

“Donna takes exception to the word inspiration and I understand that. But Donna is an inspiration not because she has a disability but because she really cares about people. She wants every student to live their best, independent life and be their best selves.

“I don’t think I’ve meet a person who is more passionate about what they do.”

Fox brings that same passion to her role as member of the CCDD, which she joined in 2023.

“People with disabilities are the largest minority in the state but we’re often the hidden people,” she said. “We need to speak up and be vocal. The Council has given me that voice to help others.” n

Teacher Cristy Chapman and student Fiona Calope confer during a YES Group meeting at Waggener High. Donna Fox is at right.

Donna Fox works with students Chuckie Penick (left) and Blake Muntz (right) at Waggener High in Louisville.

CCDD Member Profile

2024 Exceptional Family KY

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Advocacy Works

Making a NAME for Herself Six-Year-Old Chrissy Taylor Already Has a Following on TikTok

R

By John Lynch

emember this name: Chrissy Taylor. She might be famous some day.

In fact, Chrissy has already made an impact on TikTok. One of her posts went viral, garnering 2 million views. She has 26,800 followers and averages 602 likes per post.

And she’s only 6 years old.

And if determination counts for anything, nothing will slow Chrissy down.

“She has a drive like I’ve never seen in my life,” said her mother, Tianna Wright of Lexington.

“Chrissy is like, ‘I know what I want and I want to get it.’”

Chrissy was born with Arthrogryposis Multiplex Congenita, a rare condition that affects the joints, causing them to be stiff or frozen. There is no cure for the ailment, but treatment such as physical therapy can improve the quality of life for people with AMC. At birth, Chrissy could move only her neck. She wore casts on her arms and even now can barely move her left arm.

But by 7 months, she could move her right arm. Now she can feed herself and write with that arm, allowing her to pursue one of her favorite activities – drawing, which she does all the time. Her favorite things to 12

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CHRISSY TAYLOR, 6, of Lexington was born with Arthrogryposis Multiplex Congenita... and a winning personality and perpetual smile.

draw are flowers and hearts, and her favorite color is pink.

The ailment has made her legs immobile and she has undergone two surgeries already. But that hasn’t stopped her.

She uses a modified wheelchair to get from place to place, but at The Kidz Club, she has a yellow scooter that she sits on and powers herself along the floor with her hips.

Chrissy is a Kindergartner at Northern Elementary and has also attended The Kidz Club since she was 6 months old.

The Kidz Club is a Prescribed Pediatric Extended Care (PPEC) facility that provides skilled nursing and therapy

Photo by Robin Allen Photography

services to children who have medically complex conditions.

The Kidz Club serves children up to 21 years old, and its services are paid for by Medicaid.

(Please see story on Page 13).

Chrissy cuts a striking figure at The Kidz Club, where her outsized personality lights up any room she enters. One of the people Chrissy has impressed is Christina Arredondo, the RN Clinical Liaison.

Arredondo has been a nurse for 25 years and an employee at The Kidz Club for 11 years. She works with area hospitals and facilitates admissions to The Kidz Club. She was the one who admitted Chrissy to The Kidz Club.

Advocacy Works

Kidz Club Serves Medically Fragile Children

T

he Kidz Club is a Prescribed Pediatric Extended Care (PPEC) facility.

A PPEC is a link in the continuum of care for children that provides daily skilled nursing care, enrichment activities, therapies and other supports.

Since 1996, families and providers have trusted The Kidz Club PPEC to provide the safest, highest quality nursing care in a fun, stimulating environment for children from birth to under 21 years of age who have a medical complexity.

The Kidz Club has locations in Kentucky, Florida and Texas.

Services are covered by Medicaid.

No out-of-pocket cost to families.

Conditions That May Require Nursing Interventions Throughout The Day Include But Are Not Limited To: Cardiovascular; congenital;

gastrointestinal; genetic; metabolic; prematurity; neurological; neuromuscular; respiratory.

Nursing Oversight and Management of: Enteral feeding tubes; Total parenteral nutrition (TPN); Vascular access devices; Tracheostomies, colostomies, ileostomies, vesicostomies; Ventilators; Oxygen therapy; Catheterization; Continuous cardiorespiratory monitors; Continuous pulse oximetry monitors.

PPEC Case Management: Parent/guardian education provided monthly; Assistance with navigating the healthcare system and routine/preventive care; Assistance with maximizing available insurance benefits and access to resources; Coordination with durable medical equipment (DME) companies to facilitate

“Chrissy is wonderful, vivacious, sassy and mature,” Arredondo said. “She’s also independent and determined. She doesn’t let anything stop her. She is happy, positive and thriving. It’s amazing to watch her.

“People are drawn to her so I wouldn’t be surprised if she was in show biz some day.”

That day might come soon. In July, the family was contacted by the Disney Channel for a show where Chrissy would be cast as the best friend of the main character.

Chrissy was given lines to memorize for an audition and she had her lines down pat.

On the day of the Zoom audition, Chrissy was kept waiting so long that she became exhausted. Frustrated, she told her mother she was no longer interested in the show.

The show is still in development, and Chrissy has since revised her position. If Disney comes calling again, she already has a name for the proposed show: “Chrissy’s World.”

In the meantime, Fayette County Public Schools filmed Chrissy at a grocery store for an educational video about good nutrition.

Whatever the future holds for Chrissy, she has lots of support. She has a 2-year-old sister, Milliana, and three

repairs and maintenance.

Hours of Service: Monday-Friday 6 a.m.-6 p.m.; Saturday, 8 a.m.-4 p.m.

The Kidz Club Ky. Locations: Bowling Green: 1347 Kentucky Hwy. 185, Suite 2, Bowling Green, Ky., 42101 / (270) 746-0333 Erlanger: 527 Watson Road, Erlanger, Ky., 41018 (859) 727-0700 Lexington: 2200 Regency Road, Lexington Ky., 40503 (859) 224-0799 Louisville: 7140 Preston Highway, Louisville, Ky., 40219 (502) 368-9318.

Louisville: 225 N. 25th St., Louisville, Ky., 40212 (502) 365-2426 Louisville: 1517 Gagel Ave., Louisville, Ky., 40216 (502) 409-5316 n

step-siblings: Maddie Chenault, 15, Honesty (8) and Devvin (6) Sloan.

Tianna, 26, is raising Chrissy with assistance from Christopher Taylor, Chrissy’s father.

Tianna currently works at Sally Beauty and owns the online clothing company, Chrissy Taylor scoots L&R Clothing. When from room to room she opens a store, at The Kidz Club. she plans to call it Chrissy’s Closet.

Caring for Chrissy keeps her busy and her life filled with drama. But she’s ready for it.

“I normalize chaos and that makes my life manageable,” Tianna said. “Plus, we are the strongest family you ever met. There is no battle too big for us to fight.” n 2024 Exceptional Family KY

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Advocacy Works

ARMS II Tackles WAIVER WAITING LISTS

More Than 12,000 People Are on Waiting Lists For 3 Medicaid Waivers

T

By John Lynch

errance Davis, 30 of Louisville was diagnosed at 3 years old with autism, epilepsy and apraxia.

He is nonverbal, intellectually delayed and can speak only with the aid of a device, and then only to express his needs. Conversation is a “no go,” said his mother Tina.

His lack of communication skills makes it hard for Terrance to be independent with daily life. His mother knew he would need help and applied for the SCL Waiver in 2005.

Davis is ambulatory and very athletic. He can play basketball, tennis and soccer.

He also can run track, bowl, box and rock climb.

You know what he can’t do? He can’t get a Supports for Community Living (SCL) Waiver even though he is eligible for services.

SCL Waiver services include money for home adaptations and for personal assistance.

If Terrance had received the SCL Waiver in 2005, family life would have been much different.

Tina Davis quit her job as a school teacher nearly 20 years ago to stay home and care for her son.

In addition, she has wanted to modify her home to better accommodate her son.

Without the waiver, the family cannot afford those modifications.

The Davis family is hardly alone.

Forest Thompson-Bell, 27, also of Louisville has autism and a moderate intellectual disability.

With Special Olympics, he does gymnas14

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Tina Davis, left, with her son Terrance, 30

tics and cheerleading, and he takes theater arts classes and sings with the Derby City Voices, an all-inclusive choir.

Like Terrance Davis, he too has applied for the SCL Waiver and has been placed on the waiting list.

How long must he wait? At the current rate of 50 new recipients a year receiving waiver services, Thompson-Bell will receive SCL Waiver services when he’s 92 years old. Terrance Davis will be 95.

It’s the same story for many Kentuckians. According to numbers compiled by the advocacy group Advocates for Reforming Medicaid Services (ARMS), more than 12,000 Kentuckians are on waiting lists for three different waivers.

The wait list numbers and wait time for all who are currently on wait lists to be served are as follows: u Home & Community-Based Waiver: 1,094 and 22 years; u Michelle P. Waiver: 8,398 and 168 years;

u Supports for Community Living Waiver: 3,231 and 65 years.

“These numbers show how poorly people with disabilities are treated in this commonwealth,” said Sheila Schuster, a longtime advocate and member of ARMS. “People with disabilities qualify for and deserve these services. The earlier we can get them these services, the healthier their lives will be.”

Kim Thompson and Tina Davis are disheartened that their sons must wait for services they need.

“This is not fair to my son,” Tina Davis said. “It’s also not fair to me that I have to work even harder to get what he deserves.

It’s not right. We’re a lost population."

Added Kim Thompson, who also is an ARMS member: “The long waiting lists seem like a crime.

"The state has an obligation to supply services and care for people with varying degrees of disability. And the state is not doing that.”

Advocacy Works

I

Medicaid Waivers Explained

n 1987, Kentucky created its first two 1915(c) Medicaid waivers and began offering Home and Community Based Services (HCBS) to individuals who are aged, have a physical disability or are ventilator dependent.

Since then, HCBS in Kentucky has expanded to six waivers serving a range of populations, including those with brain injuries and those who have an intellectual or developmental disability.

The waivers offer different services and come with different eligibility requirements. The six waivers are: Home and Community Based Waiver HCBS provides assistance to the elderly or to adults and children with physical disabilities to help them live in the community as independently as possible.

Brain Injury Acquired Brain Injury (ABI) Acute Waiver: The ABI waiver is for adults with an acquired brain injury who can benefit from intensive rehabilitation services. The services are provided shortly after the brain injury and are designed to help participants reenter the community and function independently.

Acquired Brain Injury Long Term Care (ABI LTC) Waiver: The ABI LTC waiver is for adults with an acquired brain injury who have reached a plateau in their rehabilitation level. They require maintenance therapeutic and supports services to live safely in the community.

Michelle P. Waiver MPW provides assistance to individuals with intellectual or

Waiver Background A pivotal point in Kentucky’s waiver system came in 1999 with the U.S. Supreme Court ruling known as the Olmstead Decision.

The ruling found that states cannot make institutionalization a condition for publicly funded health coverage unless it is clinically mandated.

Instead, states must direct their health programs for persons with disabilities toward providing community-based care.

After a few years of study, Kentucky’s Cabinet for Health and Family Services and the Kentucky Department for Medicaid Services instituted several Home & Community-Based waivers.

But in 2002, a woman named Michelle P. sued the state because the waiting list for the SCL Waiver already had swelled to 3,000 people.

In 2008 the state agreed to start a new Medicaid waiver – the Michelle P. Waiver – to serve people on the waiting list. The new waiver offered fewer services than the SCL Waiver.

Currently, Kentucky has six HCB waivers. (Please see related story on this page.)

In 2003, the waiver system was threatened by a bipartisan cost-cutting bill that changed eligibility requirements and denied services to an estimated 3,000 people in the first six months after the bill passed.

That’s when 40 advocates formed ARMS and launched a statewide, grass-roots campaign that resulted in then Governor Ernie Fletcher issuing an executive order that rescinded the legislation.

ARMS organized demonstrations at the book store in Bowling Green owned by then Speaker of the House Jody Richards; the Burkesville law offices of David Williams, then the state Senate President; and finally outside of Fletcher’s office in Frankfort.

developmental disabilities to help them live in the community as independently as possible.

Model II Waiver MIIW provides assistance to individuals who use a ventilator for 12 or more hours a day to allow them to live in the community as independently as possible.

Supports for Community Living Waiver SCL provides services including a residential option to individuals with an intellectual or developmental disability to help them live in the community as independently as possible.

For more information, visit https://www.chfs.ky.gov/ agencies/dms/dca/Pages/default. aspx n

“The demonstrations received lots of press coverage and the campaign was hugely successful,” said Schuster, a supporter of ARMS then and now.

Schuster cited the effort of the brother-sister team of David Allgood and Cathy Allgood-Murphy. David Allgood is a member of the Commonwealth Council on Developmental Disabilities and works at the Center for Accessible Living in Louisville. He has used a wheelchair since incurring a spinal cord injury as a teenager.

Cathy Allgood-Murphy is retired, but in 2003 was a lobbyist for the American Association of Retired Persons (AARP). Because older adults also receive services from waivers, Allgood-Murphy helped organize the protests.

“I rode around and carried a sign at the protests, and my sister was very impressive,” David Allgood said. “She is a good organizer and would not let things go.

“We need another statewide presence to address these waiting lists.”

ARMS Past and Present ARMS members came to that same conclusion after a meeting in early 2023 when a group of original members discussed what had changed since 2005.

After they acknowledged that progress had stagnated and waiting lists had swelled to large numbers, ARMS II was formed with some of the original 40 members of ARMS I. ARMS II has made the long HCB waiting lists a top priority.

The second edition of ARMS includes an impressive group of seasoned advocates, including Schuster, David Allgood, parents

Please see ARMS, Page 17 2024 Exceptional Family KY

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Resource List 2024 Chrissy Taylor, 6, of Lexington is already a TikTok star with more than 26,000 followers.

Please see her story on Page 12.

Photo by Robin Allen Photography

GENERAL Commonwealth Council on Developmental Disabilities 1024 Capital Center Dr., Frankfort, Ky., 40601 (502) 564-7841 The mission of the CCDD is to create systemic change in Kentucky that empowers individuals to achieve full citizenship and inclusion in the community through education, capacity building and advocacy.

CCDD is a dynamic mix of people with unique backgrounds and experiences. Members include 16 governor-appointed individuals with disabilities and family members of individuals with disabilities, as well as representatives from major state agencies that serve people with developmental disabilities. https://ccdd.ky.gov Amazing Opportunities Kentucky (AOK) 269 East Main St., Morehead Ky., 40351 (606) 484-0780 / (606) 207-0225 AOK aims to promote independence to people

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with intellectual and developmental disabilities to support them in living a life they want to live. AOK supports building natural, lasting relationships, opportunities for growth, competitive employment, and collaboration within the community for maximum self-reliance. AOK is a joint venture between two heart-driven, service-minded individuals: Executive Director LeeAnn Creech and Program Director Kaitlyn Paschall. Together, they have a combined 30 years of experience providing supports to individuals with disabilities and have spent their lifetime being advocates. / www.aoky.org The Arc of the United States 2000 Pennsylvania Ave., NW, Suite 500, Washington, D.C., 20006 / (202) 534-3700 The Arc promotes and protects the human rights of people with intellectual and developmental disabilities, and actively supports their full inclusion and participation in the community throughout their lifetimes. / www.thearc.org Best Buddies Kentucky (502) 536-7876

Best Buddies Kentucky, founded in 2009, is dedicated to establishing a volunteer movement that creates opportunities for one-to-one friendships, integrated employment, leadership development, and inclusive living for individuals with intellectual and developmental disabilities. www.bestbuddies.org/kentucky Best Point Education and Behavioral Health (Formerly Children’s Home of Cincinnati) 5050 Madison Road, Cincinnati, Ohio, 45227 (513) 272-2800 Best Point Education & Behavioral Health follows the principles of the Teaching-Family Model (TFM) to help vulnerable children with social, behavioral, and learning challenges succeed in their home, school, and community environments. The Teaching-Family Model is an evidence-based behavior modification model that teaches at-risk children to improve their behaviors and social skills. / www.tchcincy.org Big Brothers Big Sisters Organizations For more than 100 years, Big Brothers Big Sisters

Advocacy Works

ARMS Continued from Page 15 like Thompson and the following key members: Johnny Callebs, executive director of the CCDD; Mary Hass, whose late brother had a severe brain injury.

Hass is a past president of the Brain Injury Association of Kentucky and currently serves as Chair of the Brain Injury Association of America – Ky. Chapter.

Darla Bailey operated an adult day center in Louisville called Kaleidoscope for 22 years until she retired.

Steve Shannon is the director of Kentucky Association of Regional Programs, and Bob Napolilli is the executive director of the Council on Developmental Disabilities in Louisville.

Napolilli’s agency is serving as a clearing house for ARMS with information on its website (www.the-council.org/arms) about ARMS II, waiver waiting lists, advocacy training and how to talk to your legislator.

“We have recruited parents to advocate for ARMS II and we want our website to be a one-stop shopping place for advocacy,” Napolilli said.

Groups supporting ARMS include AARP of Kentucky; The ARC of Central Kentucky; Advocacy Action Network; Brain Injury Association of America, Kentucky Chapter; Center for Accessible Living; Commonwealth Council on Developmental Disabilities; Council on Developmental Disabilities in Louisville; Kaleidoscope; Kentucky Association of Public Providers; Kentucky Association of Regional Programs; Kentucky Protection & Advocacy; Lee Specialty Clinic; Seven Counties Services; Zoom Group.

Action Items In the past year, ARMS II has met numerous times to plan strategy and recruit more support. Members soon confronted another obstacle.

“Some parents have given up hope,” said Mary Hass, who has advocated for more than 30 years.

“Some families believe that long waiting lists are normal, but they’re not. The system needs to change.”

Darla Bailey, who ran Kaleidoscope for 22 years, agrees if for no other reason than it is the right thing to do.

“The state should not have to be told that you have to take care of people who need help,” she said. “We’re not serving people we’re supposed to take care of.

“It is beyond time for the Cabinet for Health and Family Services to be forced to follow through and address the waiting lists. We are so far behind but I believe it can be fixed.”

Hass and Bailey feel optimisKim Thompson with her son Forest Thompson-Bell, 27, and her husband Eric Peters tic after meeting with legislators.

“I feel hopeful because we have met with a few key legislators who do Based Services provided through Medicwant to do better,” Hass said. aid waivers are cost-effective solutions ARMS II is calling on all Kentuckians that provide quality healthcare to aged to help. A rally at the Capitol Rotunda is individuals and those with intellectual or scheduled for Tuesday, Feb. 27 from 12:30- developmental disabilities (I/DD) or ac2 p.m. (EST). All are welcome to attend. quired brain injuries, while allowing them Supporters are also encouraged to phone to remain in the communities in which their legislators and ask them to increase they can thrive. funding to reduce waiting lists. The goal According to Medicaid, the annual cost is to get at least 1,000 Kentuckians to call to place an individual in an Intermediate their legislators.

Care Facility is approximately $372,493.25 (To learn the name of your legislaper person. tor, visit www.legislature.ky.gov, then The cost for an individual in the Supcall 800-372-7181 to have your voice ports for Community Living Waiver is only heard.) $87,020.37.

The Michelle P. Waiver is even more cost-effective at $42,461.02 per person.

Money Matters According to ARMS II, eliminating wait The remedy to reduce the waiting list is lists for waivers is not only the right thing money. With proper funding, the current to do legally and morally, it is an investwaiting lists can be erased in eight years, ment in the wellbeing of each individual. according to ARMS II. ARMS II summarized its case in a stateThe group is asking the General Asment. sembly to allocate $58,643,607 over the “We call on our legislators to recognize next two years when the state also would the historic lack of support and funding receive $152,077,224 in federal funds. for these all important waivers and to take Similar requests for funding would be bold legislative action to address these ismade again in each of the next three biensues with significantly increased funding. nial budgets to complete the eight-year “By engaging in a robust spending plan wait list elimination plan.

The total of $210,720,831 over two years model that we have proposed, the current waiver waiting lists will be erased over the might seem like a large number until you realize that the projected Medicaid budget next eight years. Stop the Wait in Eight!”

While ARMS works to secure more fundfor services is approximately $5.5 billion. ing, the Davis and Thompson families – The ARMS II request is less than 4% of and thousands more like them – continue the Medicaid services budget. to wait and wait and wait... n In addition, Home and Community2024 Exceptional Family KY

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Resource List 2024 has operated under the belief that inherent in every child is the ability to succeed and thrive in life. As the nation’s largest donor and volunteer-supported mentoring network, Big Brothers Big Sisters makes meaningful, monitored matches between adult volunteers (“Bigs”) and children (“Littles”), ages 6 through 18, in communities across the country.

BBBS develops positive relationships that have a direct and lasting effect on the lives of young people.

Bluegrass 181 Lowry Lane, Suite 150, Lexington Ky., 40503 (859) 231-8181 www.bbbs-bluegrass.org Greater Cincinnati 2400 Reading Road, Suite 148, Cincinnati, Ohio, 45202 / (513) 421-4120 www.bigsforkids.org Kentuckiana 1519 Gardiner Lane, Suite B, Louisville, Ky., 40218 (502) 587-0494 / (855) 524-0062 www.bbbsky.org Tristate 1557 Winchester Ave., Suite 204, Ashland, Ky., 41105 / (606) 329-8799 / www.bbbstristate.org Impact Mentoring 1 South Main St., Madisonville, Ky., 42431 (270) 821-0688 Committed to building strong, trusting and caring relationships that will have a positive impact and change the lives of those children who need it most through mentoring with an adult volunteer. www.Madisonvillebbbs.org Bluegrass Care Navigators 1733 Harrodsburg Road, Lexington, Ky., 40504 (855) 492-0812 Bluegrass Care Navigators (formerly Hospice of the Bluegrass) provides physical, emotional and spiritual care for adult and pediatric patients with life-limiting illness, and their families, at home, in nursing facilities and at Hospice Care Centers.

Support and bereavement services extend to family members and anyone in the community experiencing grief. Bluegrass Care Navigators provides care in 32 central, northern and southeastern Kentucky counties. / www.bgcarenav.org Brighton Center Inc. 741 Central Ave., Newport, Ky., 41071 (859) 491-8303 Brighton Center wraps a community of support around individuals and families by tackling the issues that prevent people from becoming self-sufficient, removing the barriers they face, and creating hope so that goals can be achieved and dreams realized.

From modest beginnings in 1966, the Center has grown to provide a wide range of programs and

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services that include meeting basic needs, adult and early childhood education, workforce development, substance abuse recovery for women, affordable housing, financial education and counseling, youth services, and neighborhood based programs. www.brightoncenter.com

Kentuckians with IDD and their families to live their best life - full of love, support and resources. The Council helps individuals, families and caregivers by providing one-on-one guidance, training events and social events to navigate essential community resources. / www.the-council.org

Build Inclusion, Inc. P.O. Box 23030, Lexington, Ky., 40523 (859) 221-6689 Build Inclusion promotes intentional inclusion, access, and opportunities through community & family education, engagement, and most of all, meaningful, competitive employment. Build Inclusion facilitates success for individuals in transition to adulthood in preparing for and fully participating in this next stage of their lives. Clinical social work services are also available for the ID/DD population. www.buildinclusion.org

Community Action Kentucky (CAK) 101 Burch Court, Frankfort, Ky., 40601 (800) 456-3452 / (502) 875-5863 CAK is a statewide association representing and assisting the 23 community action agencies as they work to empower individuals and families to attain greater economic success. / www.capky.org

Center for Accessible Living The Center for Accessible Living is an innovative leader in empowering all people to achieve their goal of independent living while involving the entire community.

Louisville Location 501 S. Second St., Suite 200, Louisville, Ky., 40202 (502) 589-6620 / (888) 813-8497 webinfo@calky.org / www.calky.org Murray Location 1051 N. 16th St., Suite C, Murray, Ky., 42071 (270) 753-7676 / (888) 261-6194 calmur@calky.org / www.calky.org Bowling Green Location 1830 Destiny Lane, Suite 108, Bowling Green, Ky. 42104 / (270) 599-0911 / www.calky.org Christian Appalachian Project 485 Ponderosa Drive, P.O. Box 1768, Paintsville, Ky., 41240 / (866) 270-4227 CAP is a Kentucky-based, non-profit Christian organization committed to serving people in need in Appalachia by providing physical, spiritual and emotional support through a wide variety of programs and services. / www.christianapp.org Community Action Kentucky (CAK) 101 Burch Court, Frankfort, Ky., 40601 (800) 456-3452 / (502) 875-5863 CAK is a statewide association representing and assisting the 23 community action agencies as they work to empower individuals and families to attain greater economic success. / www.capky.org Council on Developmental Disabilities 1219 West Jefferson Street, Suite 106 Louisville, Ky., 40203 / (502) 584-1239 Since 1952, the Council has empowered

Home of the Innocents 1100 E. Market St., Louisville, Ky., 40206 (502) 596-1000 / info@homeoftheinnocents.org Home of the Innocents is the region’s open arms to kids in crisis, providing therapeutic, loving care to children who are victims of abuse, abandonment and neglect. It’s also home to children who have autism and other behavioral health diagnoses; who are medically fragile; and families with exceptional needs.

Open Arms Children’s Health is the Home’s health care facility offering pediatric medical, dental, hearing, vision and pharmacy. / www.homeoftheinnocents.org Human Development Institute (HDI) Kentucky’s University Center on Disability University of Kentucky 113 Mineral Industries Building, Lexington, Ky., 40506-0051 / (859) 257-4356 HDI’s mission is to advance efforts that build inclusive communities, address inequities, and improve the lives of all people who experience disability across the lifespan. HDI achieves its mission through leadership and community partnerships across Kentucky and the nation. Learn more at www.hdi.uky.edu Independence Place, Inc. 2358 Nicholasville Road, Suite 180, Lexington, Ky., 40503 / (859) 266-2807 Independence Place is a non-profit, consumerdriven, non-residential Center for Independent Living, serving people with disabilities of all ages. The mission is to help people with disabilities achieve their potential for community inclusion by improving access and equal opportunity. / www.ipky.org Independence Seekers Project 1244 South Third St., Suite 200, Louisville, Ky., 40203 / (502) 509-9363 As a leader in disability advocacy, the Independence Seekers Project aims to challenge ableism and redefine community through a support

Advocacy Works

Meet the

COUNCIL MEMBERS (L TO R): Regina Watts, Andrea Bartholome, Donna Fox, Kelly Jones, Meagan Brannon, Mark Rothel, Darrell Mattingly, Jacob Cruz, Ronnie O’Hair, Leigh Van Hooser, Laura Smith Butler, Mark Leach, Danny Slaton, Amy Smith, Chad Hunt NOT PICTURED: Casey Allen, David Allgood, Camille Collins, Scott Collins, Blaire Handshoe, Tammie Isenberg, Barb Locker, Sharon Raymond

Come Join Us!

If you want to affect policy, influence legislators and advocate for change, the CCDD Council is the place for you.

Call today to learn how you can make a difference.

(502) 564-7841

www.CCDD.KY.gov 2024 Exceptional Family KY

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Resource List 2024 network built by those with disabilities. Alongside peers and allies, ISP aspires to create a more inclusive community dedicated to interdependence. www.independenceseekersproject.org KARRN (Kentucky Appalachian Rural Rehabilitation Network) UK College of Health Sciences 900 South Limestone, Lexington, Ky., 40536 (859) 218-0580 / Patrick.Kitzman@uky.edu A collaborative team composed of individuals impacted by neurological conditions, providers who serve them, members of communities in which they live, advocates, educators and researchers who investigate these conditions. / www.karrn.org Kentucky Association of Sexual Assault Programs 83-C Michael Davenport Blvd., Frankfort, Ky., 40601 / (502) 226-2704 erecktenwald@kasap.org KASAP’s mission is to speak with a unified voice against sexual victimization. KASAP is funded in whole or in part with public funds. / www.kasap.org Kentucky Partnership for Families and Children, Inc. 600 Teton Trail, Frankfort, Ky., 40601 (502) 875-1320 / (800) 369-0533 Melissa@kypartnership.org KPFC’s vision is that all families raising youth and children affected by behavioral health challenges will achieve their fullest potential. KPFC’s mission is to empower families affected by behavioral health challenges to initiate personal and systems change. www.kypartnership.org Kentucky Special Parent Involvement Network, Inc. (KY-Spin) 10301-B Deering Road, Louisville, Ky., 40272 (502) 937-6894 / (800) 525-7746 The mission is to link families and individuals with disabilities to valuable resources that will enable them to live productive, fulfilling lives. A project of KY-SPIN, Inc. is the KY-SPIN Parent Center PTI (Parent Training & Information Project), which is funded by the U.S. Dept. of Education. KY-SPIN Parent Center provides training, information and support for children and youth with all types of disabilities (birth through 26 years old), their parents, families and professionals. www.kyspin.com Kentucky Youth Advocates 10200 Linn Station, Suite 310, Louisville, Ky., 40223 / (502) 895-8167 / (888) 825-5592 KYA advocates for policies that give children the best possible opportunities for a brighter future and are making Kentucky the best place in America to be young. / www.kyyouth.org

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Prevent Child Abuse Kentucky 2265 Harrodsburg Road, Suite 200, Lexington, Ky., 40504 / (859) 225-8879 / 1-800-CHILDREN pcaky@pcaky.org The mission of PCAK is to prevent the abuse and neglect of Kentucky’s children through advocacy, education, awareness and training. PCAK is helping to build a better Kentucky by shaping future leaders and their families to ensure Kentucky’s children grow up in safe, healthy environments. Being a parent can be tough. For FREE, confidential information and support, call the helpline at 1-800-CHILDREN. www.pcaky.org Public Library Home Delivery Service Many of the state’s county public libraries offer home delivery service for those with physical limitations that prevent them from visiting. Below are libraries in the state’s most populous areas. Contact the public library in your county to inquire about services.

Boone County (Florence): (859) 342-2665 ext. 8108 www.bcpl.org/docs/library/we-deliver.pdf Campbell County (Newport): (859) 572-5035 ext. 352 www.cc-pl.org/services/adult-outreach-services Kenton County (Covington): (859) 962-4062 www.kentonlibrary.org/outreach/homebound Laurel County Public Library (London): (606) 864-5759 www.Laurellibrary.org/services/outreach-services/ Lexington: (859) 231-5500 www.lexpublib.org/outreach Louisville: (502) 574-1611 www.lfpl.org/bookstoyou.html Warren County (Bowling Green): (270) 535-4886 https://warrenpl.org/using-the-library/ Daviess County (Owensboro) (270) 691-1886 www.dcplibrary.org/books-to-you Paul Sawyier (Frankfort): (502) 352-2665 www.pspl.org/outreach-services Hardin County (Elizabethtown): (270) 769-6337 www.hcpl.info/services.asp Safe Kids Worldwide 1 Inventa Place, Sixth Floor West, Silver Spring, Md., 20910 / (202) 662-0600 Safe Kids is a program that brings together health and safety experts, educators, corporations, foundations, governments and volunteers to educate and protect families. Safe Kids is a global network of organizations dedicated to preventing accidental

injury. Efforts are needed because as many as 90% of accidental injuries can be prevented. www.safekids.org Safe Kids Fayette County 2333 Alumni Park Plaza, Suite 105, Lexington, Ky., 40517 / (859) 323-1153 https://ukhealthcare.uky.edu/safe-kids-fayette-county Louisville and Jefferson County Coalition Norton Children’s Hospital, 315 E. Broadway, Louisville, Ky., 40202 / (502) 629-7244 www.safekids.org/coalition/safe-kids-louisville TASH Disability Advocacy Worldwide 1825 K St., NW, Suite 1250, Washington D.C., 20006 / (202) 817-3264 An international association of people with disabilities, family members, other advocates and professionals working for a society in which inclusion of all people in all aspects of society is the norm. www.tash.org Kentucky Chapter Darrell Mattingly / (859) 229-7499 darrell.mattingly@uky.edu www.tash.org/chapters/kentucky-tash/ Tourette Association of America 42-40 Bell Boulevard, Suite 507, Bayside, NY., 11361 / 888-4-TOURET (888) 486-8738 support@tourette.org Tourette Association of America (formerly Tourette Syndrome Association) is the only national organization serving the community, and works to raise awareness, advance research, and provide ongoing support to patients and families impacted

by Tourette Syndrome and Tic Disorders. The TAA directs a network of 31 Chapters, 83 support groups and recognizes 18 Centers of Excellence across the country. / www.tsa-usa.org Tourette Syndrome in the Bluegrass Angela King / (270) 317-3046 www.facebook.com/tourettesyndromeinthebluegrass Toys With a Purpose (859) 218-0580 / phkitz1@uky.edu A project of the KATS network at the University of Kentucky, Toys With a Purpose is a collaboration that provides free adapted toys to individual families through an online lending library. Organizers are planning to expand services to provide adapted toys to organizations that work closely with children of all abilities. Additionally, this program serves as a platform for educating students from multiple levels (high school, community college, and university) about inclusion and accessibility through the process of adapting toys. https://toyswithapurposeky.com

Resource List 2024 Un Abrazo Amigo Parent Support Group Lexington / (859) 474-2722 Un Abrazo Amigo is a parent support group in Spanish for families of children and youth with special health care needs and serves families from Fayette and surrounding counties. The support group works on addressing language and cultural barriers to access to health care and social services, reducing caregiver stress and enhancing children’s health and well-being, and supporting families in becoming advocates for their children through education and mutual support.

United Way Bluegrass 651 Perimeter Dr., Suite 510, Lexington, Ky., 40517 (859) 233-4460 / 211 Help Line LiveUnited@uwbg.org / www.uwbg.org Kentucky P.O. Box 4653, Louisville, Ky., 40204 (502) 589-6897 / 211 Help Line / www.uwky.org Metro 334 E. Broadway, P.O. Box 4488, Louisville, Ky., 40204 / (502) 583-2821 / 211 Help Line Fights for the education, health, housing and financial stability of every person. www.metrounitedway.org WHAS Crusade for Children 520 West Chestnut St., Louisville, Ky., 40202 (502) 582-7706 The WHAS Crusade for Children, established in 1954, raises money for agencies, schools and hospitals to better the lives of children with special needs. The Crusade Advisory Panel, an independent board of interdenominational ministers, decides how donations are distributed each year. www.whascrusade.org

STATE RESOURCES Brain Injury Acquired Brain Injury (ABI) Waiver 275 E. Main St. 6W-B, Frankfort, Ky., 40621 (502) 564-5198 / (866) 878-2626 This program is designed to provide intensive services and support to adults with acquired brain injuries as they work to re-enter community life. https://chfs.ky.gov/agencies/dms/dca/Pages/abi.aspx/ Traumatic Brain Injury (TBI) Trust Fund 275 E. Main St., 3E-E, Frankfort, Ky., 40601 (502) 564-6930 / toniaawells@ky.gov This program offers flexible funding and support for people with traumatic brain injuries. The fund

supports supplemental, community-based efforts to meet the special needs of individuals with brain injury. chfs.ky.gov/agencies/dail/Pages/tbitrust.aspx Cabinet for Health and Family Services Office for Children with Special Health Care Needs The mission of the OCSHCN is to enhance the quality of life for Kentucky’s children with special health care needs through quality service, leadership, advocacy, education and collaboration.

The OCSHCN’s vision is to be the visible leader in supporting the highest quality of life for Kentucky’s children with special health care needs and their families through collaboration and creation of a more accessible community based system of support. www.chfs.ky.gov/agencies/ocshcn/Pages/default.aspx Regional Offices: Central office / Louisville 310 Whittington Parkway, Suite 200, Louisville, Ky., 40222 / (502) 429-4430 / (800) 232-1160 Serving Bullitt, Carroll, Gallatin, Henry, Jefferson, Oldham, Owen, Shelby, Spencer, Trimble counties and statewide.

Barbourville 110 Johnson Lane, Barbourville, Ky., 40906 (606) 546-5109 / (800) 348-4279 Serving Bell, Clay, Harlan, Jackson, Laurel, Rockcastle, Knox and Whitley counties.

Bowling Green 2040 Louisville Road, Bowling Green, Ky., 42101 (270) 746-7816 / (800) 843-5877 Serving Allen, Barren, Butler, Christian, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Todd and Warren counties.

Elizabethtown 580 Westport Road, Elizabethtown, Ky., 42701 (270) 766-5370 / (800) 995-6982 Serving Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson and Washington counties.

Hazard 103 Town and Country Lane, Suite M, Hazard, Ky., 41701 / (606) 435-6167 / (800) 378-3357 Serving Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry and Wolfe counties.

Lexington 333 Waller Ave., Suite 300, Lexington, Ky., 40504 (859) 252-3170 / (800) 817-3874 Serving Anderson, Bourbon, Boone, Boyle, Clark, Estill, Fayette, Franklin, Garrard, Grant, Harrison, Jessamine, Kenton, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, and Woodford counties.

Morehead 214 W. First St., Morehead, Ky., 40351 (606) 783-8610 / (800) 928-3049 Serving Bath, Boyd, Bracken, Campbell, Carter, Elliot, Fleming, , Greenup, Lawrence, Lewis, Mason, Menifee, Montgomery, Morgan, Pendleton,

Robertson and Rowan counties.

Owensboro 1600 Breckenridge St., Suite 1200, Owensboro, Ky., 42303 / (270) 687-7038 / (877) 687-7038 Serving Daviess, Hancock, Henderson, Hopkins, McLean, Muhlenberg, Ohio, Union and Webster counties.

Paducah 2855 Jackson St., Paducah, Ky., 42003 (270) 443-3651 / (800) 443-3651 Serving Ballard, Caldwell, Calloway, Carlisle, Crittenden, Fulton, Graves, Hickman, Livingston, Lyon, Marshall, McCracken and Trigg counties.

Prestonsburg 5000 Ky. Route 321, Prestonsburg, Ky., 41653 (606) 889-1761 / (800) 594-7058 Serving Floyd, Johnson, Magoffin, Martin and Pike counties.

Somerset Professional Plaza, 401 Bogle St., Suite 104, Somerset, Ky., 42503 (606) 677-4120 / (800) 525-4279 Serving Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor and Wayne counties.

Career and Technical Education 300 Sower Blvd., 5th Floor, Frankfort, Ky., 40601 (502) 564-4286 ext. 4249 The Department of Education offers four-course career and technical education (CTE) pathways.

These pathways pave the way for early postsecondary opportunities in the form of recognized industry certifications and credentials, CTE end-ofprogram certificates for articulated postsecondary credit and CTE dual credit, ensuring a seamless transition into the workforce or postsecondary programs for our graduates. https://education.ky.gov/CTE/Pages/default.aspx Family to Family Health Information Centers 1600 Breckenridge St., Suite 1200 Owensboro, Ky., 42302 / (502) 782-8781 ext. 1 (270) 993-9430 / Sondra.Gilbert@ky.gov Located at the offices of the Commission for Children with Special Health Care Needs, Family to Family HICs are family-run centers that assist families of children and youth with special health care needs and the professionals who serve them. The goal is to help keep children healthy by promoting regular medical care. F2F HICs help families make more informed choices by providing support, information, resources and training. F2F HICs promote access to community-based, self-directed services that are available to children with special needs. https://chfs.ky.gov/agencies/ccshcn/Pages/ftf.aspx Hart-Supported Living Program

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Resource List 2024 275 E. Main St., 3E-E, Frankfort, Ky., 40601 (502) 564-6930 / pcap.hsl@ky.gov The Hart-Supported Living program provides funds for supports to help Kentuckians with disabilities live in their homes and communities and avoid institutionalization. Any Kentuckian with a disability as defined by the Americans with Disability Act can apply for Hart-Supported Living funds. chfs.ky.gov/agencies/dail/Pages/hslp.aspx Coordinators Region 1: Angel Lawrence P.O. Box 3759, Paducah, Ky., 42003 (502) 401-8650 / angel.lawrence@ky.gov Counties: Ballard, Caldwell, Calloway, Carlisle, Christian, Crittenden, Fulton, Graves, Henderson, Hickman, Hopkins, Livingston, Lyon, Marshall, McCracken, McLean, Muhlenberg, Todd, Trigg, Union, Webster.

Region 2: Makalla Morrison P.O. Box 2010, Bowling Green, Ky., 42102 (502) 229-5211 / makalla.morrison@ky.gov Counties: Adair, Allen, Barren, Breckinridge, Butler, Cumberland, Daviess, Edmonson, Grayson, Green, Hancock, Hardin, Hart, Larue, Logan, Meade, Metcalf, Monroe, Nelson, Ohio, Simpson, Taylor, Warren.

Region 3: Amanda Coulter P.O. Box 876, Lawrenceburg, Ky., 40342 (502) 229-2294 / AmandaM.Coulter@ky.gov Counties: Anderson, Bourbon, Boyle, Casey, Clark, Fayette, Franklin, Gerrard, Jessamine, Lincoln, Madison, Marion, Mercer, Montgomery, Pulaski, Rockcastle, Scott, Woodford.​ Region 4: Susan Miller P.O. Box 9531, Louisville, Ky., 40209 (502) 229-9716 / smiller@ky.gov Counties: Carroll, Gallatin, Henry, Jefferson, Oldham, Owen, Shelby, Spencer, Trimble, Washington.

Region 5: Caryn Turvey P.O. Box 1385​, Ashland, Ky., 41105 (502) 229-6863 / caryn.turvey@ky.gov Counties: Bath, Boone, Boyd, Bracken, Campbell, Carter, Fleming, Grant, Greenup, Harrison, Kenton, Lewis, Mason, Nichols, Pendleton, Robertson, Rowan.

Region 6: Angelia Forgey P.O. Box 1907, Hyden, Ky., 41749 (502) 401-8654 / angelia.forgey@ky.gov Counties: Bell, Breathitt, Clay, Elliot, Estill, Floyd, Harlan, Jackson, Johnson, Knott, Knox, Laurel, Lawrence, Lee, Leslie, Letcher, Magoffin, Martin, McCreary, Menifee, Morgan, Owsley, Perry, Pike, Powell, Wayne, Whitley, Wolfe. ​ Home and Community-Based Waiver (HCB) 275 E. Main St., 6W-B, Frankfort, Ky., 40621 (502) 564-5560 / dmsweb@ky.gov The HCB waiver is part of Kentucky’s 1915(c) HCBS Medicaid waiver program. HCB provides assistance to the elderly or to adults and children

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with disabilities to help them live in the community as independently as possible. https://chfs.ky.gov/agencies/dms/dca/Pages/hcbwaiver.aspx Kentucky Assistive Technology Loan Corp.

Mayo-Underwood Building 500 Mero St., 1st Floor, SE, Frankfort Ky., 40601 (877) 675-0195 The Kentucky Assistive Technology Loan Corporation (KATLC) offers low interest loans for qualified applicants with disabilities for assistive technology. Notice January 2024: The KATLC is going through a reorganization. As a part of this process, KATLC will be looking for a new lending partner. Interested lending partners may contact KATLC at (877) 675-0195 or edu.katlc@ky.gov for additional information. https://katlc.ky.gov/Pages/default.aspx Kentucky Education & Labor Cabinet 500 Mero St., Frankfort, Ky., 40601 (502) 564-3070 Providing Kentuckians from all across the Commonwealth with the opportunity of transformational change through education and quality training so they can attain a meaningful career, support their families, break the cycle of poverty and prosper. https://educationcabinet.ky.gov/Pages/default.aspx Kentucky Children Insurance Program (K-CHIP) (855) 459-6328 KCHIP is a free health insurance program for children under the age of 19 without health insurance who qualify for help. KCHIP covers prescriptions, well-care checks and immunizations, hospital stays, provider and dental visits, mental health services, glasses and vision care, speech and physical therapy, and much more. Uninsured children under 19 who live in families with an income at or less than 218% of the federal poverty level are eligible. https://kynect.ky.gov/benefits/s/medicaid-kchipprogram?language=en_US Kentucky Commission on the Deaf and Hard of Hearing 632 Versailles Road, Frankfort, Ky., 40601 (502) 573-2604 / Videophone: (502) 416-0607 kcdhh@ky.org / www.kcdhh.ky.gov Provide effective and efficient leadership, education, advocacy and programs to eliminate barriers and to meet the social, economic, educational, cultural, intellectual and health and human services needs of deaf and hard of hearing Kentuckians.

Kentucky Community Mental Health Centers 275 E. Main St., 6W-D, Frankfort, Ky., 40621

(502) 564-4527 Community Mental Health Centers provide a comprehensive range of accessible, coordinated, direct or indirect mental health services through Kentucky's 14 regional MH/IDD boards. Regional boards are private, nonprofit organizations serving residents of designated multicounty regions. chfs.ky.gov/agencies/dms/dpo/bpb/Pages/cmhc. aspx Regional Offices: https://dbhdid.ky.gov/cmhc/centers.aspx Adanta MH / MR Board 130 Southern School Road, Somerset, Ky., 42501 (606) 679-4782 Serving Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor, Wayne counties. www.adanta.org Communicare, Inc. 107 Cranes Roost Court, Elizabethtown, Ky., 42701 (270) 765-2605 Serving Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson, Washington counties. www.communicare.org Comprehend, Inc. 611 Forest Ave., Maysville, Ky., 41056 (606) 564-4016 Serving Bracken, Fleming, Lewis, Mason, Robertson counties. / www.comprehendinc.org Cumberland River Behavioral Health 1203 American Greeting Card Road Corbin, Ky., 40702 / (606) 528-7010 Serving Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley counties. / www.crbhky.org Four Rivers Behavioral Health 425 Broadway, Paducah, Ky., 42001 (270) 442-7121 / 24-hour Line (800) 592-3980 Serving Ballard, Calloway, Carlisle, Gallatin, Graves, Hickman, Livingston, McCracken,Marshall counties. www.4rbh.org Kentucky River Community Care 3830 Hwy. 15 South, Jackson, Ky., 41339 (606) 666-7591 Serving Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry, Wolfe counties. / krccnet.com Lifeskills 380 Suwanee Trail St., Bowling Green, Ky. 42103 (270) 901-5999 Serving Allen, Barren, Butler, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Warren counties. www.lifeskills.com Mountain Comprehensive Care Center 104 S. Front Ave., Prestonsburg, Ky., 41653 (606) 886-8572 Serving Floyd, Johnson, Magoffin, Martin, Pike counties. / www.mtcomp.org New Vista 1351 Newtown Pike, Building 5, Lexington, Ky., 40511

Resource List 2024 (859) 253-1686 / (859) 272-7483 24-hour help line (800) 928-8000 Serving Anderson, Bourbon, Boyle, Clark, Estill, Fayette, Garrard, Harrison, Jessamine, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, Woodford counties. / newvista.org NorthKey Community Care P.O. Box 2680, Covington, Ky., 41011 (859) 578-3200 Serving Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen, Pendleton counties. www.northkey.org Pathways, Inc. 1212 Bath Ave., 8th Floor, Ashland, Ky., 41101 (606) 329-8588 Serving Bath, Boyd, Carter, Elliott, Greenup, Lawrence, Menifee, Montgomery, Morgan, Rowan counties. / www.pathways-ky.org Pennyroyal MH / MR Board 3999 Fort Campbell Blvd., Hopkinsville, Ky., 42240 (270) 886-2205 Serving Caldwell, Christian, Crittenden, Hopkins, Lyon, Muhlenberg, Todd, Trigg counties. www.pennyroyalcenter.org RiverValley Behavioral Health, Inc. 1100 Walnut St., Owensboro, Ky., 42302 (270) 689- 6500 Serving Davies, Hancock, Henderson, McLean, Ohio, Union, Webster counties. / www.rvbh.com Seven Counties Services 10401 Linn Station Road, Suite 100, Louisville, Ky. 40223 / (502) 589-8600 Serving Bullitt, Henry, Jefferson, Oldham, Shelby, Spencer, Trimble counties. / www.sevencounties.org Kentucky Department for Behavioral Health, Developmental and Intellectual Disabilities 275 E. Main St., 4W-F, Frankfort, Ky., 40621 (502) 564-4527 The mission is to provide leadership to prevent disability, build resilience in individuals and their communities and facilitate recovery for people affected by mental illness, substance abuse or intellectual or developmental disability. https://chfs.ky.gov/agencies/dbhdid/Pages/default. aspx Kentucky Early Intervention System 275 E. Main St., HS2WC, Frankfort, Ky., 40621 (502) 564-3756 Kentucky Early Intervention System is a statewide early intervention system that provides services to children with developmental disabilities from birth to age 3 and their families. Kentucky Early Intervention System is Kentucky’s response to the federal InfantToddler Program. Kentucky Early Intervention System offers comprehensive services through a variety of community agencies and service disciplines and is

Donna Fox oversees a work session during a YES Group meeting at Waggener High in Louisville. administered by the Department for Public Health in the Cabinet for Health and Family Services. https://chfs.ky.gov/agencies/dph/dmch/ecdb/Pages/ keis.aspx Regional Offices: https://chfs.ky.gov/agencies/dph/dmch/ecdb/fs/ POElistingforWebsite.pdf Barren River District Point of Entry P.O. Box 6499, 380 Suwannee Trail, Bowling Green, Ky., 42103 / (270) 901-5749 / (800) 643-6233 Counties served: Allen, Barren, Butler, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Warren Big Sandy District Point of Entry 104 South Front Ave., Prestonsburg, Ky., 41653 (606) 886-4417 / (800) 230-6011 Counties served: Floyd, Johnson, Magoffin, Martin, Pike Bluegrass District Point of Entry 1351 Newtown Pike, Building 5, Lexington, Ky., 40511 / (859) 271-9448 / (800) 454-2764 Counties served: Anderson, Bourbon, Boyle, Clark, Estill, Fayette, Franklin, Garrard, Harrison, Jessamine, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, Woodford

Buffalo Trace District Point of Entry 611 Forest Ave., Maysville, Ky., 41056 (606) 564-3919 / (800) 335-4249 Counties served: Bracken, Fleming, Lewis, Mason, Robertson Cumberland Valley District Point of Entry 175 East Peachtree St., Corbin, Ky., 40701 (606) 523-0229 / (800) 509-9559 Counties served: Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley.

FIVCO District Point of Entry 5850 U.S. 60, Box 11 Summit Plaza, Ashland, Ky., 41102 / (606) 929-9155 / (800) 650-1329 Counties served: Boyd, Carter, Elliott, Greenup, Lawrence Gateway District Point of Entry 68 Oberline St., Owingsville, Ky., 40360 (606) 674-3204 / (800) 942-4358 Counties served: Bath, Menifee, Montgomery, Morgan, Rowan Green River District Point of Entry 1501 Breckenridge St., Owensboro, Ky., 42303 (270) 852-2905 / (888) 686-1414

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Resource List 2024 Counties served: Daviess, Hancock, Henderson, McLean, Ohio, Union, Webster Kentuckiana District Point of Entry 312 Whittington Parkway, Suite 200, Louisville, Ky., 40222 / (502) 429-1249 / (800) 422-0087 Counties served: Bullitt, Henry, Jefferson, Oldham, Shelby, Spencer, Trimble Kentucky River District Point of Entry 115 Rockwood Lane, Hazard, Ky., 41701 (606) 439-1325 / (800) 328-1767 Counties served: Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry, Wolfe Lake Cumberland District Point of Entry 259 Parkers Mill Road, Somerset, Ky., 42501 (606) 678-2821 / (800) 378-2821 Counties served: Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor, Wayne Lincoln Trail District Point of Entry 2935 Dolphin Drive, Suite 204, Elizabethtown, Ky., 42701 / (270) 737-5921 / (800) 678-1879 Counties served: Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson, Washington Northern Kentucky District Point of Entry NorthKey Community Care: 502 Farrell Drive, Covington, Ky., 41011 / (859) 578-3200 St. Elizabeth: Community Outreach Building 4900 Houston Road, Florence, Ky., 41042 (859) 655-1195 Counties served: Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen, Pendleton Pennyrile District Point of Entry 400A Hammond Plaza, Hopkinsville, Ky., 42240 (270) 886-5186 / (877) 473-7766 Counties served: Caldwell, Christian, Crittenden, Hopkins, Lyon, Muhlenberg, Todd, Trigg Purchase District Point of Entry 425 Broadway, Suite 204, Paducah, Ky., 42001 (270) 442-6223 / (800) 648-6599 Counties served: Ballard, Carlisle, Calloway, Fulton, Graves, Hickman, Livingston, Marshall, McCracken.

Kentucky IMPACT Program 275 E. Main St., 4W-G, Frankfort , Ky., 40621 (502) 564-4456 / (502) 782-6165 Kentucky IMPACT is a statewide program that coordinates services for children with severe emotional disabilities and their families. IMPACT serves children and youth of all ages. https://dbhdid.ky.gov/dbh/kyimpact.aspx The Kentucky Office of Vocational Rehabilitation The Mayo-Underwood Building 500 Mero St.,4th floor NE, Frankfort, Ky., 40601 (502) 564-4440 / (800) 372-7172 The Kentucky Office of Vocational Rehabilitation (OVR) Comprehensive Statewide Needs Assessment

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(CSNA) assesses the vocational rehabilitation needs of Kentuckians with disabilities every three years, as required by the Rehabilitation Act of 1973 (as amended). OVR uses the results to develop and update its state plan for vocational rehabilitation services, and to help determine objectives and priorities. https://kcc.ky.gov/Vocational-Rehabilitation/Pages/ Kentucky-Office-of-Vocational-Rehabilitation.aspx To find a Regional office, visit: https://kcc.ky.gov/Pages/Locations.aspx Kentucky Transitions (Money Follows the Person Demonstration Grant) 275 East Main St., 6 W-B, Frankfort, Ky., 40621 (502) 564-0330 / (877) 564-0330 Kentucky Transitions helps people move out of nursing facilities or institutions and into their own homes. The Department for Medicaid Services developed the program in 2008 with a Money Follows the Person demonstration grant from the Centers for Medicare and Medicaid Services.

Kentucky Transitions has helped more than 750 people leave institutional care. https://chfs.ky.gov/agencies/dms/dca/Pages/ kytransitions.aspx Medicaid Waiver Provider Directory The Provider Directory is maintained by the Division of Developmental & Intellectual Disabilities. Contact information for provider agencies certified to provide SCL/Michelle P. Medicaid waiver services may be accessed in this interactive map. https://dbhdid.ky.gov/ProviderDirectory/ ProviderDirectory.aspx Division of Community Alternatives Medicaid Waivers 275 E. Main St., 6W-B, Frankfort, Ky., 40621 (502) 564-7640 If you have a disability or are elderly, you may qualify for a 1915(c) Home- and CommunityBased Services (HCBS) Medicaid waiver. These waivers provide the support you need to live as independently as possible. The Department for Medicaid Services (DMS) offers six waiver programs: ABI Acute and ABI Long-Term Care Waivers; Home and Community Based (HCB) Waiver; Model II Waiver (MIIW); Michelle P. Waiver; Supports for Community Living (SCL) Waiver. chfs.ky.gov/agencies/dms/dca/Pages/default.aspx Personal Care Attendant Program Department for Aging and Independent Living 275 E. Main St., 3E-E, Frankfort, Ky., 40621 The Personal Care Attendant Program helps severely physically disabled adults at risk of being

institutionalized to live in their own homes and communities by subsidizing costs of personal attendant services. chfs.ky.gov/agencies/dail/Pages/pcap.aspx Social Security Administration (800) 772-1213 / www.ssa.gov Regional Offices: https://www.benefitsoffices.com/state/index. php?st=KY&page=1 Ashland 1405 Greenup Ave., Room 132, Ashland, Ky., 41101 / (866) 269-3993 Bowling Green 2724 Chandler Drive, Bowling Green, Ky., 42104 (877) 801-0817 Campbellsville 101 Hiestand Farm Road, Campbellsville, Ky., 42718 (877) 828-1695 Corbin 159 Future Drive, Corbin, Ky., 40701 (877) 405-0470 Danville 103 Belinda Blvd., Danville, Ky., 40422 (877) 512-3850 Elizabethtown 591 Westport Road, Elizabethtown, Ky., 42701 (866) 596-7123 Florence 7 Youell St., Florence, Ky., 41042 (800) 772-1213 Frankfort 140 Flynn Ave., Frankfort, Ky., 40601 (866) 964-1724 Harlan 189 Village Center, Harlan Ky., 40831 (888) 590-2707 Hazard 122 Reynolds Lane, Hazard, Ky., 41701 (877) 405-0491 Henderson 2000 North Elm, Henderson Ky., 42420 (855) 628-1593 Hopkinsville 1650 Marie Drive, Hopkinsville, Ky., 42240 (877) 405-7656 Jackson 850 KY-15 N., Jackson, Ky., 41339 (866) 366-4920 Lexington 2241 Buena Vista Road, Lexington, Ky., 40505 (866) 530-7754 Louisville 10503 Timberwood Circle, Louisville, Ky., 40223 (888) 280-5851 Louisville 601 W. Broadway, Louisville, Ky., 40202 (866) 716-9671

Resource List 2024 Madisonville 4431 Hanson Road, Madisonville, Ky., 42431 (877) 626-9912 Mayfield 1526 Cuba Road, Mayfield, Ky., 42066 (866) 931-8366 Maysville 509 Market Place Drive, Maysville, Ky., 41056 (855) 807-8802 Middlesboro 10 S.E. Tech Dr., Middlesboro, Ky., 40965 (877) 619-2853 Owensboro 4532 Lucky Strike Loop, Owensboro, Ky., 42303 (866) 836-5834 Paducah 125 Brett Chase Road, Paducah, Ky., 42003 (866) 614-7905 Pikeville 333 Hambley Blvd., Pikeville, Ky., 41501 (888) 676-2942 Prestonsburg 1897 Ky. Route 321, Prestonsburg, Ky., 41653 (888) 450-4538 Richmond 1060 Gibson Bay Drive, Richmond, Ky., 40475 (866) 838-8945 Somerset 3975 U.S.-27, Somerset, Ky., 42501 (877) 714-0375 Zero V: Kentucky United Against Violence 111 Darby Shire Circle, Frankfort, Ky., 40601 (502) 209-5382 ZeroV's coalition supports Kentucky's 15-regional Domestic Violence Programs, providing free, confidential residential services and non-residential services to survivors of intimate partner violence. www.zerov.org

ADOPTION AND FOSTERING Adoption Support for Kentucky UK College of Social Work 619 Patterson Office Tower, Lexington, Ky., 40511 (859) 257-6650 (888)-44-ASKKY / ask@uky.edu Adoption Support for Kentucky (ASK) is an awardwinning program that utilizes innovative training modalities and inclusive support group practices to meet the needs of foster, adoptive, relative, and fictive-kin caregivers throughout the Commonwealth. https://socialwork.uky.edu/centers-labs/trainingresource-center/adoption-support-for-kentucky

The Bair Foundation 2393 Alumni Drive, Suite 205, Lexington, Ky., 40517 / (859) 519-3273 / www.bair.org For more than 50 years, The Bair Foundation has remained steadfast and responsive in its work to bring about meaningful change in the lives of America’s most vulnerable. As a Christian foster care agency, the foundation has provided hope and stability to more than 250,000 children and families in crisis.

Benchmark Family Services Therapeutic Foster Care Kentucky Administrative Office 160 Burt Road, Lexington, Ky., 40503 (859) 899-9515 Provides quality out-of-home placements for youth in need by working with referring agencies to guarantee the support, treatment and care they deserve. Serves children with emotional, mental and physical disabilities along with youth who have been severely neglected or abused. Therapeutic services include training of foster families. Benchmark Family Services has offices in Berea, Bowling Green, Columbia, Corbin, Elizabethtown, Florence, Hazard, Irvine, Lexington, London, Louisville, Madisonville, Morehead, Owensboro, Owenton, Prestonsburg and Somerset. / www.benchmarkfamilyservices.org Best Point Education and Behavioral Health (Formerly Children’s Home of Cincinnati) 5050 Madison Road, Cincinnati, Ohio, 45227 (513) 272-2800 Best Point Education & Behavioral Health follows the principles of the Teaching-Family Model (TFM) to help vulnerable children with social, behavioral, and learning challenges succeed in their home, school, and community environments. The Teaching-Family Model is an evidence-based behavior modification model that teaches at-risk children to improve their behaviors and social skills. / www.tchcincy.org Key Assets Behavioral Health 961 Beasley St., Suite 160 &170, Lexington, Ky., 40509 / (859) 226-5022 The goal of Key Assets Behavioral Health is to be the safety net for children, families and adults in times of crisis. Additionally, it is important to provide ongoing support following a crisis. This support may take many forms, including psychological assessment and/or testing, targeted case management, and individual or group therapy. / www.keyassetskentucky.com

THE ARTS Allegro Dance Project (715) 252-6137 / info@allegrodanceproject.org

Based in Lexington, Allegro Dance Project is a non-profit contemporary dance company specializing in Inclusive dance outreach for children with Down syndrome, Autism Spectrum Disorder and other specific needs. www.allegrodanceproject.org Arts for All Kentucky 907 Arcadia Circle, Murray, Ky., 42071 (270) 792-0023 / programs@artsforallky.org Non-profit organization dedicated to providing inclusive arts and education programs for children, youth and adults with disabilities, in addition to professional development for artists and teachers in schools and communities statewide. Offers an under-served population equal opportunity to explore the arts in a way that is fully accessible. Through participatory involvement with trained professionals and volunteers, people with disabilities learn new creative and social skills that open doors to new opportunities. www.artsforallky.org Latitude Artist Community 740 National Ave., Suite 180, Lexington, Ky., 40502 (859) 806-0195 Latitude is an art studio that serves all people, with an emphasis on those who are considered to have a disability. The multimodal activities, workshops and community outreach events form a framework that encourages us to recognize our own life’s narrative, and to then choose ways in which we may contribute to the well-being of our community. www.latitude-arts.com Lexington Children’s Theatre 418 W. Short St., Lexington, Ky., 40507 (859) 254-4546 LCT is committed to creating an environment where everyone feels welcome to enjoy the magic of theatre. Join LCT for sensory friendly performances that are designed to be a safe environment where young people with sensory sensitivities or disabilities, first-time theatre goers, young children, and their friends and family are free to speak, respond and move around the seating area in reaction to the story.

ASL interpretation and audio description are also available. / www.lctonstage.org/tickets/access-at-lct/ Wildwood Music Therapy 2375 Professional Heights Dr., Suite 134C Lexington, Ky., 40503 / (859) 212-3260 Board-certified music therapists provide music therapy and adaptive music lesson services for all ages and abilities. Sessions celebrate strengths and help clients achieve their goals. wildwoodmusictherapy.com

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Resource List 2024 KATS Network Disability Solutions Through Technology Office of Vocational Rehabilitation 8020 Veterans Memorial Drive, Suite 100, Florence, Ky., 41042 / (800) 327-5287 / Info@katsnet.org The Kentucky Assistive Technology Locator is a free service of the KATS Network that connects Kentuckians to the AT devices they need to live independently. By registering for an account, you can borrow devices to try, find used devices for free or low-cost, sell used devices, give away devices or place want ads for devices you need. www.katsnet.org

Avery Richardson, 9, and Rory McGrath, 9, enjoyed themselves at the Southern Lights/Kentucky Horse Park Holiday Adventure sponsored by A Kid Again & the Spina Bifida Assn. of Kentucky.

ASSISTIVE TECHNOLOGY The Appalachian Center for Assistive Technology (ACAT) (606) 439-3557 / (crystal.hignite@uky.edu) (keisha.wells@uky.edu) / Patrick Kitzman (859) 218-0580 / (phkitz1@uky.edu) The Center is the Assistive Technology Resource Center serving eastern Kentucky and is a part of Kentucky Assistive Technology Service (KATS) Network. ACAT provides assistive technology (AT) demonstrations and consultation, a short term AT loan locker, maker space, workforce training, and refurbishing. www.uky.edu/chs/karrn/acat Carl D. Perkins Vocational Training Center 5659 Main St., Thelma, Ky., 41260 (606) 788-7080 / emily.jackson@ky.gov The mission of the Carl D. Perkins Vocational Training Center is that persons will achieve

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sustainable, competitive, integrated employment, maximize independence, and gain self-respect through the provision of comprehensive services.

Consumers may live on campus in dormitory housing or can commute to the Perkins Center each day they are scheduled for classes and/or therapy. https://kcc.ky.gov/Vocational-Rehabilitation/seekingservices/cdpvtc/Pages/default.aspx HDI Center for Assistive Technology Services (CATS) 2358 Nicholasville Road, Suite 180, Lexington, Ky., 40503 / (859) 218-7979 CATS is a non-profit, grassroots organization that assists individuals who have disabilities, their families and service providers in connecting with various technologies and services that provide the gateway to greater independence, productivity and quality of life. CATS is a member of the Alliance for Technology Access, The Eastern Regional Center for the Kentucky Assistive Technology Service (KATS) Network. https://hdi.uky.edu/hdicats / www.facebook.com/ HDICATS

KATS Project CARAT (800) 327-5287 / (606) 439-3557 keisha.wells@uky.edu A program of KATS, CARAT enables under-served individuals with disabilities in the Appalachian region of Kentucky by collecting, refurbishing and redistributing assistive technology and durable medical equipment through a collaborative network of partners. The goal of Project CARAT is to make Assistive Technology and Durable Medical Equipment more accessible to those who need it in rural Kentucky. In order to make this happen, Project CARAT is partnering with agencies across the state.

To request equipment or for donation information, call the ProjectCARAT Hotline at (800) 327-5287. www.katsnet.org/services/at-reuse/ KATS Project CARAT-TOP Keisha Wells (606) 439-3557 (keisha.wells@uky.edu) / Patrick Kitzman (859) 218-0580 / (phkitz1@uky.edu) CARAT-TOP is an 8-week program that brings together students, of all abilities, from local high schools and the community to develop skills in assessing community accessibility, refurbishing used medical equipment, adapting toys and other assistive technology devices, prototype new parts, and develop strategies for engaging community stakeholders (leaders, businesses, faith communities, local media, etc.).

Kentucky Assistive Technology Loan Corp.

Mayo-Underwood Building 500 Mero St., 1st Floor NE, Frankfort Ky., 40601 (877) 675-0195 The Kentucky Assistive Technology Loan Corporation (KATLC) offers low interest loans for qualified applicants with disabilities for assistive technology. Notice: January 2024: The Kentucky Assistive Technology Loan Corporation is going through a reorganization. As a part of this process, KATLC will be looking for a new lending partner.

Interested lending partners may contact KATLC at (877-675-0195) or edu.katlc@ky.gov for additional

Resource List 2024 information. https://katlc.ky.gov/Pages/default.aspx Ky. Department of Education Exceptional Children and Early Learning 300 Sower Blvd., 5th Floor, Frankfort, Ky., 40601 (502) 564-4970 / gretta.hylton@education.ky.gov The Office of Special Education and Early Learning (OSEEL) works to improve educational outcomes for diverse and early learners through training and coaching for local district staff and teachers, technical assistance, guidance and policy documents, and providing supports for students and their families. www.education.ky.gov/specialed/Pages/default.aspx Easter Seals Redwood 71 Orphanage Road, Ft. Mitchell, Ky., 41017 (859) 331-0880 Easterseals Redwood is leading the way to full equity, inclusion, and access through life-changing services. Easterseals Redwood operates programs designed to enrich education, expand employment, enhance health and elevate our communities. www.eastersealsredwood.org/ Wendell Foster Technology and Resource Center 815 Triplett Street, Owensboro, Ky., 42303 (270) 852-1488 Wendell Foster Technology and Resource Center is a member of the Kentucky Assistive Technology Services (KATS) Network. Services include a lending library, device demonstrations, and a reutilization program that assists consumers in finding gently used equipment at no cost. Staff can also provide information and assistance on a variety of disability topics and help navigate local and state resources. https://wendellfoster.org/technology-and-resourcecenter/

AUTISM As You Are (866) 219-8595 As You Are is a virtual clinic for autism diagnostic evaluations for kids ages 16 months to 10 years old.

Diagnostic evaluations are conducted by a team of physicians via telehealth appointments. https://asyouare.com/ Autism Society of the Bluegrass P. O. Box 24212, Lexington, Ky., 40524-2412 Established in 1991 and a chapter of the Autism Society of America, ASBG is an all-volunteer group of families, caregivers and self-advocates.

The mission is to provide community, education,

advocacy and support to those impacted by Autism Spectrum Disorder. ASBG hosts monthly meetings with speakers on a wide variety of topics related to autism. It also operates a discussion board and is active on social media. Everyone, including individuals, families, educators, therapists and healthcare providers, are welcome to participate. www.asbg.org www.youtube.com/user/autismsocietybg www.facebook.com/Autism-Society-of-theBluegrass-122689954438582/ Autism Connections (Formerly Autism Society of Greater Cincinnati) P.O. Box 75, Milford, Ohio, 45150 (513) 561-2300 / info@autismcincy.org Autism Connections works to promote awareness and education about autism. Autism Connections provides information packets, support groups for families and individuals, newsletters and public speakers. / www.autismcincy.org Autism Society of Kentuckiana P.O. Box 21895, Louisville, Ky., 40221-0895 Rob Ralston: (502) 541-5038 / info@ask-lou.org www.ask-lou.org Autistic Self Advocacy Network P.O. Box 66122, Washington, D.C., 20035 info@autisticadvocacy.org The Autistic Self Advocacy Network seeks to advance the principles of the disability rights movement with regard to autism. https://autisticadvocacy.org Capital Area Autism Parents (CAAP) (502) 330-5223 / capitalareaautism@gmail.com Established in 2013, Capital Area Autism Parents is a support group for parents, caregivers, autistic self-advocates, and neurodivergent voices. Support group members will find resources, information, opportunities, and friendships. CAAP hosts meetings with speakers and events to bring awareness and education to the Central Kentucky community.

CAAP values individuality and the uniqueness of every journey. CAAP believes no one should walk this journey alone and support is essential for every individual. / www.facebook.com/groups/CAAP2 Families for Effective Autism Treatment 1100 E. Market St., Louisville, Ky., 40206 (502) 774-0797 Families for Effective Autism Treatment (FEAT) of Louisville is a non-profit organization that actively supports and funds autism programs for the entire family. / www.featoflouisville.org

Lexington: 1300 E. New Circle Road, Suite 150, Lexington, Ky., 40505 / (859) 685-1019 Louisville East: 215 South Hurstbourne Parkway, Suite 213, Louisville, Ky., 40222 (502) 353-2074 Louisville South: 175 Market Place Drive, Suite A, Louisville, Ky., 40229 / (502) 251-7002 Bowling Green: 2427 Russellville Road, Bowling Green, Ky., 42101 / (270) 936-7472 Edgewood: 2904 Foltz Drive, Edgewood, Ky., 41017 (859) 795-3000 Provides a full range of professional services in one location for a child with Autism Spectrum Disorder and other developmental delays. www.hopebridge.com The Kelly Autism Program Western Kentucky University Clinical Education Complex, 104 Alumni Ave., Bowling Green, Ky., 42101 / (270) 745-4232 cec@wku.edu The Kelly Autism Program offers educational support through Individual Education Plan assistance, classroom adaptations and tutoring, community involvement through active participation in community activities, social and leisure activities, job coaching, and parent support. www.wku.edu/kellyautismprogram Ky. Autism Training Center: Kosair for Kids University of Louisville 1405 E. Burnett Ave., Louisville, Ky., 40217 (502) 852-4631 / (800) 334-8635 ext. 852-4631 / katc @ louisville.edu www.louisville.edu/education/kyautismtraining Kentuckiana Autistic Spectrum Alliance (KASA) The Autistic Self Advocacy Network is a national organization of autistic people advocating for the rights of autistic people. kyautisticalliance@gmail.com www.facebook.com/KASALouisville Life Works at WKU 1328 Adams St., Bowling Green, Ky., 42101 (270) 745-4380 LifeWorks at WKU is a supportive living and learning community for autistic young adults as they transition to independent living and employment. www.lifeworksatwku.org PACT: Police Autism Community Training PACT is a non-profit program aimed at educating and raising autism awareness within Kentucky’s law enforcement departments. PACT seeks to increase awareness and knowledge through a classroom

Hopebridge Autism Therapy Centers

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Resource List 2024 session focused on improving miscommunication among law enforcement officials and individuals with autism. / www.pactautism.com

CAMPS AND RECREATIONAL ACTIVITIES Bowling Green Parks and Recreation Special Populations Division Kummer Little Recreation Center, 333 College St., Bowling Green, Ky., 42101 / (270) 393-3484 cameron.levis@bgky.org Programs and services offered provide all individuals, regardless of their ability level, opportunities for recreation and leisure. People with and without disabilities participate side by side in an inclusive environment. Activities include Bowling Green Special Olympics (softball, basketball, flag football, bowling, cheerleading, swimming, and track and field), adapted sports (wheelchair basketball, wheelchair tennis and goal ball), and social gatherings (holiday parties, movie nights, dances and more). / www.bgky.org/bgpr/special-populations Maysville Initiatives, Inc. Camp Discovery 33 W. Second St., 3rd Floor, Maysville, Ky., 41056 (606) 301-8338 dsugarbaker@maysvilleinitiatives.com A free, summer-long day camp for children aged 5-12 at Beechwood Park in Maysville. Swimming, field trips and supervised activities. Breakfast and lunch are served. The camp is open to children with disabilities. / maysvilleinitiatives.com/camp-discovery/ Camp Hendon 1640 Lyndon Farm Court, Suite 108, Louisville, Ky., 40223 / (502) 272-2370 info@camphendon.org Camp Hendon is an all-volunteer camp for children (ages 8-17) with Type I diabetes. The camp provides two separate week-long residential camping sessions to empower children to take control of their journey with diabetes. / www.camphendon.org Cassidy’s Cause Therapeutic Riding Academy 6075 Clinton Road, Paducah, Ky., 42001 (270) 554-4040 Cassidy’s Cause is a nonprofit organization whose mission is to provide individuals living with disabilities the opportunity to grow and develop through therapeutic, educational and recreational activities, while on a horse. / www.cassidyscause.org

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The Center for Courageous Kids 1501 Burnley Road, Scottsville, Ky., 42164 (270) 618-2900 / info@courageouskids.org The Center for Courageous Kids (CCK) is a medical camp where children with disabilities or life-threatening illnesses will experience what a real camp is like, in a setting that is physically safe and medically sound. The camp offers children who are typically watching rather than participating the opportunity to fully engage in camp activities that focus on their abilities. Illness specific summer camps for children (7-15) and illness specific family weekend retreats, free of charge. www.courageouskids.org Central Kentucky Riding for Hope 4185 Walt Robertson Drive inside the Kentucky Horse Park, Lexington, Ky., 40583 (859) 231-7066 / pat@ckrh.org Operated at the Kentucky Horse Park Under the guidance of trained teachers, volunteers and medical personnel, disabilities are challenged and new abilities are created. The program has proved successful in helping people with disabilities develop self-esteem, confidence, coordination and a sense of achievement while learning horsemanship and track riding principles. / www.ckrh.org Dream Riders of Kentucky Inc. 4705 Winkler Road, Philpot, Ky., 42366 (270) 613-0079 dreamridersofkentucky@gmail.com The mission of Dream Riders is to provide individuals with physical, cognitive, social, and/or emotional needs an opportunity to experience the joy of riding and the therapeutic value of horses. www.dreamridersofky.org Easter Seals Adaptive Recreation 1900 Richmond Road, Lexington, Ky., 40502 (859) 399-6270 / cindy.jacobelli@cardinalhill.org Promotes healthy and active lifestyles for people with physical disabilities through education, exposure to adaptive equipment and adaptive recreation experiences in the community. www.cardinalhill.org/programs/adaptive-recreation Kamp KESSA 758 Beechridge Road, Frankfort, Ky., 40601 (502) 376-4367 A non-profit resident camp serving populations who are at-risk and have special needs. Kamp KESSA provides adventure education and treatment programs utilizing horses and the wilderness. www.cedarfire.net Josephine Sculpture Park 3355 Lawrenceburg Road, Frankfort, Ky., 40601

(502) 352-7082 info@josephinesculpturepark.org Interact with nearly 70 works of art as you explore 30 acres of walking paths through native meadows.

The Park partners with schools and organizations to provide arts and nature programming to individuals with a disability. The Park is committed to making park grounds accessible for those with physical disabilities, and golf carts are available for those who need mobility assistance. (Please call or email before your visit to reserve). https://josephinesculpturepark.org Legacy All Sports 261 Ruccio Way, Lexington, Ky., 40503 (859) 977-8862 Carousel Kidz is a program to meet your child’s special needs with one-on-one gymnastics lessons. http://legacyallsports.com/about-us/ Lex. Parks and Recreation Therapeutic Recreation 200 E. Main St., Lexington, Ky., 40507 (859) 425-2255 Therapeutic Recreation programs provide opportunities for individuals with disabilities to enjoy activities through recreation, leisure and play, and to showcase their talents and abilities. Programs are designed to enhance the overall health, wellness and social needs of individuals with disabilities. A variety of recreation and sport opportunities are available such as adult fitness, adaptive aquatics, archery, Miracle League Baseball, cooking, summer camps, drama, hand drumming, art, day-trip outings, overnight excursions, bowling, horsemanship, dance class, special events, Zumba, yoga and more. www.lexingtonky.gov/tr Louisville Parks and Recreation Adaptive and Inclusive Recreation 1300 Heafer Road, Louisville, Ky., 40223 (502) 456-8148 Offers adaptive sports and recreation for people in Jefferson and outlying counties. Programs include the state’s only Paralympics Sports Club, plus health and wellness classes such as nutrition, yoga, and exercise and strength training classes. Sports offerings include wheelchair basketball, wheelchair tennis, bocce ball, pickle ball and wheelchair pickle ball, archery, adaptive golf, goal ball and beep baseball for people with low or no vision. Clinics are offered in track & field, wheelchair lacrosse, sled hockey and more. Louisville is also home to the state wheelchair basketball team, Louisville Spokes & Spires. https://louisvilleky.gov/government/parks/berrytownrecreation-center-adaptive-and-inclusive-recreation LYSA’s TOPSoccer Program

Resource List 2024 Masterson Station Park 3051 Leestown Road, Lexington, Ky., 40511 (859) 223-5632 / topsoccerlex@gmail.com TOPSoccer (The Outreach Program for Soccer) is a community-based soccer program designed to meet the needs of athletes with physical, developmental, and/or intellectual disabilities. Player participation and development are key elements of the program. TOPSoccer is designed to improve the overall fitness, self-esteem and social skills of your athlete. / www.lysa.org/topsoccer Special Olympics Kentucky 105 Lakeview Court, Frankfort, Ky., 40601 (502) 695-8222 / soky@soky.org Special Olympics is the world’s largest program of sports training and competition for children and adults with intellectual disabilities. / www.soky.org Toyota Bluegrass Miracle League Central Lexington YMCA 239 East High St., Lexington, Ky., 40507 (859) 367-7515 A baseball program for youth and adults with special needs. The leagues play on a specially designed field located at Shillito Park in Lexington.

The all-accessible field is the only one of its kind in Kentucky with leagues in both spring and fall. www.facebook.com/pages/category/ Disability-Service/Toyota-Bluegrass-MiracleLeague-59145356197

DOWN SYNDROME Down Syndrome Association of Central Kentucky 2265 Harrodsburg Road, Suite 370, Lexington, Ky., 40504 / (859) 494-7809 DSACK exists to celebrate the Down syndrome community, support individuals with Down syndrome and their families, educate the Central Kentucky community and assist in local and national research efforts. DSACK celebrates that all people are beautiful, capable and loved. Serves Central and Eastern Kentucky. www.dsack.org Down Syndrome Association of Greater Cincinnati 4623 Wesley Ave., Suite A, Cincinnati, Ohio, 45212 (513) 761-5400 By providing families with support, inspiration and information, the Association helps individuals with Down syndrome achieve their maximum potential. Including individuals with Down syndrome

in neighborhood schools, community activities and the business world benefits individuals and their respective communities. / www.dsagc.com Down Syndrome Association of the Heartland P.O. Box 6402, Elizabethtown, Ky., 42702-6402 (270) 312-1540 / info@dsheartland.org This organization offers support to individuals with Down syndrome, as well as their families, friends, caregivers, teachers and coworkers. Plus, this organization strives to educate the public-at-large about Down syndrome. It is the desire of Down Syndrome Association of the Heartland for every individual who has been touched by Down syndrome, regardless of age, to have access to support and services that would aid each individual in reaching his or her individual potential. / www.dsheartland.org Green River Area Down Syndrome Association Owensboro and surrounding area P.O. Box 2031, Owensboro, Ky., 42302 (270) 993-2192 / info@gradsa.org GRADSA’s mission is to enable families enriched with Down syndrome connection to share resources, build friendships, and advocate together for the future of individuals with Down syndrome. www.gradsa.org Down Syndrome of Louisville 5001 South Hurstbourne Parkway, Louisville, Ky., 40291 / (502) 495 5088 Down Syndrome of Louisville is a non-profit organization founded in 1977 whose mission is to improve the lives of persons with Down syndrome and their families by providing support, information, education, and advocating for their rights and concerns, enabling individuals to reach their full potential. / https://dsoflou.org Down Syndrome of Southern Kentucky 522 State St., Bowling Green, Ky., 42101 (270) 796-5002 / info@dssky.org A group of parents, friends and families who have loved ones born with Down syndrome provides information and support for the journey that lies ahead. Serves all ages of individuals born with Down syndrome. Most services are free. The group partners with WKU. / www.dssky.org Down Syndrome Association of Western Kentucky P.O. Box 7366, Paducah, Ky., 42002-7366 (270) 559-9026 / upsandowns@dsawk.com DSAWK promotes public awareness and acceptance of individuals with Down syndrome by providing information, resources and support in the community. Generally, meetings are on the third Monday of the month at the Heartland Worship

Center in Paducah. / www.dsawk.com National Down Syndrome Congress (NDSC) 30 Mansell Court, Suite 108, Roswell, Ga., 30076 (770) 604-9500 / (800) 232-6372 info@ndsccenter.org The NDSC provides up-to-date information on topics of interest to people with Down syndrome, family members, friends, professionals and interested others. The Center works to promote the availability of and accessibility to a full range of opportunities and/or resources that meet individual and family needs. / www.ndsccenter.org National Down Syndrome Society (NDSS) 1155 15th St., NW, Suite 540, Washington, D.C., 20005 / (800) 221-4602 / info@ndss.org The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. / www.ndss.org

EDUCATION College Planning Guide for Students with Learning Disabilities 506 2nd Ave., Seattle, Wash., 98104 hello@intelligent.com This extensive planning guide provides the tools you need to be successful in understanding the college environment for students with learning disabilities as well as your rights and potential accommodations. Whether it’s in-person or online college that you’re pursuing, this website will help you find the best resources to achieve your goals. www.intelligent.com/college-planning-guide-forstudents-with-learning-disabilities/ The Council for Exceptional Children 3100 Clarendon Blvd., Suite 600, Arlington, Va., 22201 / (888) 232-7733 The largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. CEC is known as the source for information, resources, and professional development for special educators. www.cec.sped.org EKU Center for Student Accessibility 521 Lancaster Ave., Whitlock Building, Room 361 CPO 66, Richmond, Ky., 40475 (859) 622-2933 / accessibility@eku.edu Provides equal access to University resources,

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Resource List 2024 coursework, programs and activities by serving qualified individuals, and advocating for equal access for all individuals who qualify. www.accessibility.eku.edu Family Resource and Youth Services Centers Cabinet for Health and Family Services 275 E. Main St., 3C-G, Frankfort, Ky., 40621 (502) 564-4986 / melissa.goins@ky.gov The division provides administrative support, technical assistance and training to local schoolbased Family Resource and Youth Services Centers (FRYSC). The primary goal of these centers is to remove non-academic barriers to learning as a means to enhance student academic success.

Each center offers a unique blend of programs and services determined by the needs of the population being served, available resources, location and other local characteristics.

FRYSCs have established a record of success based on improved student performance in classwork, homework and peer relations as reported by teachers. Parents, too, report they experience greater satisfaction and involvement with the schools as a result of assistance through their local FRYSCs. www.chfs.ky.gov/agencies/dfrcvs/dfrysc/Pages/ default.aspx Regional Offices: Region 1: Program Manager William Owen (270) 339-2192 / william.owen@ky.gov Counties Served: Ballard, Caldwell, Calloway, Carlisle, Christian, Crittenden, Graves, Fulton, Hickman, Hopkins, Livingston, Lyon, Marshall, McCracken, Muhlenberg, Todd, Trigg. Plus: Dawson Springs Independent, Fulton Independent, Mayfield Independent, Murray Independent, Paducah

O

Independent.

Region 2: Program Manager Heather McCarty (270) 285-2553 / heather.mccarty@ky.gov Counties Served: Butler, Daviess, Hancock, Henderson, Logan, McLean, Ohio, Simpson, Union, Webster. Plus: Bowling Green Independent, Owensboro Independent, Russellville Independent.

Region 3A: Program Manager Naela Imanyara (502) 271-7720 / naela.imanyara@ky.gov County Served: Jefferson Region 3B: Program Manager Melanie Madison (502) 330-7613 / melanie.madison@ky.gov Counties served: Jefferson, Bullitt, Meade, Nelson, Spencer. Plus: Bardstown Independent.

Region 4: Program Manager Betty Pennington (859) 227-8206 / betty.pennington@ky.gov Counties served: Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen, Pendleton. Plus: Bellevue Independent, Covington Independent, Dayton Independent, Erlanger-Elsmere Independent, Ludlow Independent, Newport Independent, Walton-Verona Independent, Williamstown Independent.

Region 5: Program Manager Paul Cookendorfer (859) 230-2104 / paul.cookendorfer@ky.gov Counties Served: Anderson, Bourbon, Clark, Franklin, Grant, Harrison, Jessamine, Madison, Mercer, Nicholas, Pendleton, Scott, Woodford.

Plus: Burgin Independent, Eminence Independent, Frankfort Independent, Paris Independent.

Region 6: Program Manager Maggie Myers (859) 200-7777 / maggie.myers@ky.gov Counties Served: Adair, Boyle, Casey, Clinton, Cumberland, Garrard, Green, Lincoln, Marion, McCreary, Pulaski, Russell, Taylor, Washington,

Wayne. Plus: Campbellsville Independent, Danville Independent, Science Hill Independent, Somerset Independent.

Region 7: Program Manager Doug Jones (606) 207-4287 / wdouglas.jones@ky.gov Counties Served: Bath, Boyd, Bracken, Carter, Elliott, Fleming, Greenup, Johnson, Lawrence, Lewis, Magoffin, Martin, Mason, Menifee, Montgomery, Morgan, Robertson, Rowan. Plus: Ashland Independent, Augusta Independent, Fairview Independent, Paintsville Independent, Raceland Independent, Russell Independent.

Region 8: Program Manager Teresa Combs (606) 272-7031 / teresa.combs@ky.gov Counties Served: Breathitt, Floyd, Knott, Lee, Leslie, Letcher, Owsley, Perry, Pike, Wolfe. Plus: Hazard Independent, Jackson Independent, Jenkins Independent, Pikeville Independent.

Region 9: Program Manager Russell Jones (606) 545-2110 / russell.jones@ky.gov Counties Served: Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley. Plus: Barbourville Independent, Corbin Independent, East Bernstadt Independent, Harlan Independent, Middlesboro Independent, Pineville Independent, Williamsburg Independent.

Region 10: Program Manager Lisa McKenzie (859) 661-9629 / lisa.mckenzie@ky.gov Counties Served: Clark, Estill, Fayette, Madison, Powell. Plus: Berea Independent.

Region 11: Program Manager Sherrie Baughn Martin (270) 505-6533 / sherrie.martin@ky.gov Counties Served: Allen, Barren, Breckinridge, Edmonson, Glasgow, Grayson, Hardin, Hart, Larue, Metcalfe, Monroe. Plus: Caverna Independent, Cloverport Independent, Elizabethtown Independent, Glasgow Independent.

Are We Missing Resources?

ur goal at Exceptional Family Magazine is to provide a comprehensive, statewide list of resources for people with disabilities.

Since we first published this magazine in 2009, we have updated and expanded our list of resources many times.

Help us continue to make this Resource Directory as accurate and thorough as possible. If you know of resources in the state or in your part of Kentucky that need to be included, please let us know.

Thanks for your assistance and we look forward to hearing from you.

To add to this Resource Directory, simply contact Editor John Lynch by phone (859) 494-1140 or email at johnplynch1950@gmail.com. n 30

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Kentucky Department of Education: Special Education Services 300 Sower Blvd., 4th Floor, Frankfort, Ky., 40601 (502) 564-4970 veronica.sullivan@education.ky.gov This site includes information on all aspects of special education programs in public schools. We welcome your comments and suggestions. If you need further assistance with finding information on special education programs in Kentucky’s public schools, please contact us. www.education.ky.gov/specialed/ excep/Pages/default.aspx

Resource List 2024 Kentucky PTA 148 Consumer Lane, Frankfort, Ky., 40601 or P.O. Box 654, Frankfort, Ky., 40602-0654 (502) 226-6607 / support@kypta.org www.kypta.org Kentucky State Department of Education 300 Sower Blvd., 5th Floor, Frankfort, Ky., 40601 (502) 564-3141 / education.ky.gov Ky. State University Office of Accessibility and Disability Services 400 E. Main St., Frankfort, Ky., 40601 Hathaway Hall Office, Suite 107 (502) 597-6041 / phillip.clay@kysu.edu The vision of the Office of Disability Services is to provide equal access and opportunities throughout the campus to individuals who have a disability, for academic and social success. www.kysu.edu/academics/disability-svcs/index.php Maysville Community and Technical College Accessibility Services 1755 U.S. Hwy. 68, Maysville, Ky., 41056 (606) 759-7141 MCTC assures equal access through services and accommodations for students with disabilities. https://maysville.kctcs.edu/about/student-life/ student-support-services/accessibility-services.aspx Morehead State University Disability Service Adron Doran University Center, Suite 202 Morehead, Ky., 40351 / (606) 783-5188 m.litton@moreheadstate.edu This office ensures that the university’s programs, activities, services and the campus itself are accessible to all students and visitors. moreheadstate.edu/student-support/disability-services/ Northern Kentucky University Student Accessibility Services Nunn Drive, Student Union, Suite 303 Highland Heights, Ky., 41099 (859) 572-5282 / osa@nku.edu NKU provides learner-centered assistance and resources to students with disabilities in their transition to Northern Kentucky University. inside.nku.edu/disability.html Special Needs Homeschooling A blog written by a mother with children with special needs, the author provides resources she has found helpful in homeschooling her children. www.specialneedshomeschooling.com University of Kentucky Disability Resource Center

725 Rose St., Multidisciplinary Science Building, Suite 407, Lexington, Ky., 40536 (859) 257-2754 / drc@uky.edu The DRC provides services to the University community so students with disabilities have an equal opportunity to fully participate in all aspects of University life. www.uky.edu/DisabilityResourceCenter University of Louisville Disability Resource Center 119 Stevenson Hall, Louisville, Ky., 40292 (502) 852-6938 / askdrc@louisville.edu In recognition of disability as an important part of the diversity of the community, the DRC fosters an inclusive campus climate through education, service, collaboration, and outreach to the University of Louisville community. www.louisville.edu/disability Western Kentucky University Student Accessibility Resource Center 1906 College Heights Blvd., Suite 21052 Downing Student Union, First Floor, 1074 Bowling Green, Ky., 42101 (270) 745-5004 / sarc.connect@wku.edu The goal of the SARC is to ensure that all students with disabilities are provided access to all facets of the Western Kentucky University experience; to facilitate and coordinate support services and programs that enable students with disabilities to maximize their educational potential; and to increase awareness among all members of the University so that students with disabilities are able to achieve academic success based on their abilities, not their disabilities. / www.wku.edu/sarc

EPILEPSY Epilepsy Alliance Ohio 895 Central Ave., Suite 550, Cincinnati, Ohio, 45202 / (513) 721-2905 / (877) 804-2241 eao@epilepsy-ohio.org / www.epilepsy-ohio.org

538A Noel Ave., Hopkinsville, Ky., 42240 (270) 885-5804 / www.hopkinsvilledyslexia.com The International Dyslexia Assn. – Ky. Branch P.O. Box 22006, Louisville., Ky., 40252 (502) 276-5153 / kentuckybranchida@gmail.com ky.dyslexiaida.org LD Online The world’s leading website on learning disabilities and ADHD. / www.ldonline.org Learning Disabilities Association of Kentucky (502) 473-1256 This comprehensive mental health professional program includes the “co-morbid” disorders often found with individuals with learning disabilities, including anxiety, depression, obsessive compulsive disorder, anger control/bipolar disorder and ADHD. www.LDAofky.org Ohio Valley Branch of the International Dyslexia Association ovbida@yahoo.com A non-profit, scientific and educational organization dedicated to the study and treatment of dyslexia. This Branch was formed to increase public awareness of dyslexia in the Southern Ohio, Southeast Indiana, Kentucky and Huntington, West Virginia areas. ohv.dyslexiaida.org Progressive Educational Program, Inc. Cress Certified 212 Venture Way, Somerset, Ky., 42503 (606) 677-2514 contact@progressiveeducationalprogram.com Dyslexia Tester. Specializing in tutoring children with Dyslexia. / www.progressiveeducationalprogram.com Wilson Pediatric Therapy & Learning 424 Lewis Hargett Circle, Suite B 100 Lexington, Ky., 40503 / (859) 475-4305 Working with children with dyslexia and other learning differences. / www.wilsonpediatric.com

Epilepsy Foundation of Kentuckiana Kosair Charities Centre, 982 Eastern Parkway Louisville, Ky., 40217 / (502) 637-4440 (866) 275-1078 / www.efky.org

LEGAL & FUTURE’S PLANNING

LEARNING DIFFERENCES

Children’s Law Center Covington Office: 1002 Russell St. Covington, Ky., 41011 / (859) 431-3313 info@childrenslawky.org Lexington Office: c/o Imani Family Life Center 215 W. Short St., Suite 205, Lexington, Ky., 40507

Dyslexia Association of the Pennyrile

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Resource List 2024 (859) 253-3353 / info@childrenslawky.org Provides free legal services for children with educational disabilities, and performs research and policy work, training and education in this area. www.childrenslawky.org Court Appointed Special Advocates for Children Kentucky CASA Network 1640 Lyndon Farm Court, Suite 108 Louisville, Ky., 40223 (502) 238-2154 CASA volunteers are everyday citizens appointed by judges to advocate for the safety and wellbeing of abused and neglected children. Last year in Kentucky, more than 800 CASA volunteers advocated for the best interest of nearly 3,000 children in Kentucky. CASA has 20 offices throughout the state. To locate one in your area, visit the web site below. www.kentuckycasanetwork.org David A. Morris Banner Wealth and Legacy Planning 448 W. Main St., Suite 200, Danville, Ky., 400422 dmorris@kingswoodus.com / (859) 516-1024 Financial strategies for families with children with special needs.

Elder Law Lawyers McClelland & Associates, PLLC Lexington: 2443 Sir Barton Way, Suite 325 Lexington, Ky., 40509 / (859) 543-0061 Fort Mitchell: 300 Buttermilk Pike, Suite 102 Fort Mitchell, Ky., 41017 / (859) 823-2300 Specializing in aspects of elder law and special needs planning. www.elderlawlexington.com Kentucky Division of Protection and Permanency 275 E. Main St., 3E-A, Frankfort, Ky., 40621 (502) 564-6852 If you believe a child is being abused, neglected or is dependent, call the Protection and Permanency office in your county or the Toll Free Child Protection Hot Line. (877) KYSAFE1 or (877) 597-2331. chfs.ky.gov/agencies/dcbs/dpp/Pages/default.aspx Kentucky Office of Victims Advocacy 1024 Capital Center Drive, Suite 200 Frankfort, Ky., 40601 (502) 696-5312 The Office of Victims Advocacy works to ensure crime victims are treated with respect and dignity as their case proceeds through the criminal justice system.

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https://ag.ky.gov/about/Office-Divisions/OVA/Pages/ default.aspx Kentucky Protection & Advocacy 5 Mill Creek Park, Frankfort, Ky., 40601 (800) 372-2988 / (502) 564-2967 The mission is to protect and promote the rights of Kentuckians with disabilities through legally based individual and systemic advocacy and education.

Staff includes professional advocates and attorneys. www.kypa.net Life Plan of Kentucky, Inc. 230 Lexington Green Circle, Suite 120 Lexington, Ky., 40503 (859) 523-2323 Life Plan is a pooled special needs trust serving people with disabilities and their families in Kentucky who have countable resources in excess of $2,000 and need to maintain their eligibility for Supplemental Security Income (SSI) or Medicaid. People can open an account with Life Plan where the funds can be professionally managed, and then requests can be made for expenses that improve the quality of the person’s life. Life Plan provides Trustee services for both individuals with disabilities as well as family members who wish to plan for the future. www.lifeplanofky.org Nick Wallace, Financial Planner Northwestern Mutual 330 E. Main St., Suite 300, Lexington, Ky., 40507 (859) 302-1223 Nick.Wallace@nm.com Provides financial planning, life insurance, investments for special needs families to fund special needs trusts and retirement. nickwallace.nm.com

MEDICAL AND THERAPY SERVICE PROVIDERS Associates in Pediatric Therapy Bowling Green Area: 1053 Lovers Lane, Bowling Green, Ky., 42103 / (270) 807-0335 Bullitt County: 1707 Cedar Grove Road, Shepherdsville, Ky., 40165 / (502) 203-1354 Elizabethtown: 529 Westport Road Elizabethtown, Ky., 42701 / (270) 807-0316 Louisville Area: 11840 Commonwealth Dr., Louisville, Ky., 40299 / (502) 203-1918 Louisville Area: 1800 Neville Dr., Louisville, Ky.,

40216 / (502) 203-1396 Lexington Area: 261 Ruccio Way, Lexington, Ky., 40503 / (859) 279-0252 Masonic Home: 3761 Johnson Hall Dr. Masonic Home, Ky., 40041 / (502) 293-1695 Northern Kentucky: 51 Cavalier Blvd., Suite 230, Florence, Ky., 41042 / (859) 279-0143 Oldham County: 6400 Crestwood Station, Crestwood, Ky., 40014 / (502) 203-1887 Shelby County: 90 Howard Dr., Shelbyville, Ky., 40065 / (502) 233-9074 Woodford County: 205 Frankfort St., Suite 3, Versailles, Ky., 40383 / (859) 279-0252 APT’s unique appeal is that it offers a family approach with multiple pediatric services including Occupational Therapy, Speech Therapy, Physical Therapy, Developmental Intervention and Audiology to the patient and family in a team approach. APT strives to provide therapy in a variety of locations that are appealing to the patient and family. www.kidtherapy.org Blue Sprig Pediatrics Lexington Autism Therapy Center 1035 Strader Drive, Suite 150, Lexington, Ky., 40505 / (859) 899-9200 Georgetown Autism Therapy Center 104 Market Path, Georgetown, Ky., 40324 (502) 632-6241 Techniques and procedures are guided by the science of Applied Behavior Analysis by Board Certified Behavior Analysts. bluesprigautism.com Brain Injury Alliance of Kentucky 7321 New La Grange Road, Suite 100 Louisville, Ky., 40222 / (502) 493-0609 BIAK seeks to share its philosophy, experience and skills with survivors, family members, students, caregivers, administrators, health professionals, legislators, the lay community and all those who desire to make a difference in the life of individuals with brain injuries and their families. www.biak.us Brain Injury Association of America – Kentucky Chapter 1-800-444-6443 / braininjuryinfo@biausa.org BIAA-KY’s mission is to advance awareness, research, treatment and education and to improve the quality of life for all people affected by brain injury. / https://biaaky.org Cardinal Hill Rehabilitation Hospital 2050 Versailles Road, Lexington, Ky., 40504 (859) 254-5701 https://encompasshealth.com/cardinalhillrehab

Resource List 2024 Cincinnati Children’s Hospital Center for Infants and Children with Special Needs 3333 Burnet Ave., Cincinnati, Ohio, 45229 (513) 636-4200 / TTY (800) 344-2462 www.cincinnatichildrens.org/patients/child/specialneeds/getting-started/about Early Intervention & Consultation Services, LLC Leitchfield: 635 S. Main St. Leitchfield, Ky., 42754 / (270) 287-0656 Vine Grove: 298 Medley Court Vine Grove, Ky., 40175 / (270) 352-1133 Owensboro: 722 Harvard Drive Owensboro, Ky., 42301 / (270) 240-1842 Mt. Washington: 673 N. Bardstown Road Mt. Washington, Ky., 40047 / (270) 287-0656 EICS, founded in 2010, is a pediatric therapy clinic that offers Speech Therapy, Occupational Therapy, Physical Therapy, ABA/Applied Behavior Analysis (for those with autism). EICS also offers mental health counseling and case management. EICS has a licensed psychological associate who provides evaluations for different diagnoses such as autism, dyslexia, learning disabilities and behavioral disorders, etc. EICS also offers Michelle P. Waiver services such as Positive Behavior Supports and Community Living Supports. Please call the location nearest you for more information regarding the services offered at that clinic. / www.eicsky.com Early Periodic Screening Diagnostic and Treatment Special Services (EPSDT) Dept. of Medicaid Services, Children’s Health Services 275 E. Main St., 6C-C, Frankfort, Ky., 40621 (800) 635-2570 / TTY (800) 775-0296 (502) 564-9444 The EPSDT Screening Program provides routine physicals or well child check-ups for Medicaid eligible children at certain specified ages. EPSDT can also provide speech/language, physical and/or occupation therapy, and specialized durable medical equipment for children who qualify and need those services. www.chfs.ky.gov/agencies/dms/provider/Pages/ epsdtservice.aspx Easter Seals Cardinal Hill 1900 Richmond Road, Lexington, Ky., 40502 (859) 399-6270 https://cardinalhill.org/about/easter-seals/ Easter Seals West Kentucky Adult Center 1908 N. 14th St., Paducah, Ky., 42001 (270) 443-1200 www.easterseals.com/westkentucky/connect-locally/ service-center-locations/west-kentucky-adultservices-paducah.html

Easter Seals West Kentucky Child Center 801 N. 29th St., Paducah, Ky., 42001 (270) 444-9687 www.easterseals.com/westkentucky/ Promotes healthy and active lifestyles for people with physical disabilities through education, exposure to adaptive equipment and adaptive recreation experiences in the community.

Edelson and Associates, PSC 7511 New La Grange Road Louisville, Ky., 40222 / (502) 423-1151 230 Lexington Green Circle, Suite 420 Lexington, Ky., 40503 / (859) 287-0760 Neuropsychological, ADHD, learning disability, autism and psychological disorder evaluations. www.edelsonandassociates.info Frazier Rehabilitation Institute University of Louisville Health 200 Abraham Flexner Way Louisville, Ky., 40202 / (502) 582-7400 Known for world-class care in comprehensive acute rehab, Frazier Rehab Institute provides extensive therapy across a number of specialties for inpatient and outpatient rehab needs. https://uoflhealth.org/locations/frazier-rehabilitationinstitute/ HealthPoint Family Care 1401 Madison Ave., Covington, Ky., 41011 (859) 655-6100 HealthPoint Family Care’s vision is a community where everyone has access to quality, affordable health care. The mission is to be the best provider of health services through compassion and innovation. www.healthpointfc.org/location/covington Heartfelt Solutions 2831 S. Hurstbourne Parkway, Suite A Louisville, Ky., 40220 / (502) 915-8343 Option 1 Dedicated to improving the quality of life and increasing independence for individuals by providing effective person-centered and evidence-based health services. Those services include adult day training, community living supports, respite, person-centered coaching, supported employment, community access and ABA Therapy for individuals with autism. www.hfssupportservices.com Horn and Associates in Rehabilitation 2412 Greatstone Point, Lexington, Ky., 40504 4127 Todds Road, Lexington, Ky., 40509 (859) 224-4081 HRA offers assessments and intervention from a multi-disciplinary team, including physical therapy, occupational therapy, speech-language pathology, psychology, developmental intervention, social work

and case management. HRA provides independent evaluation and intervention services. www.horntherapy.com Kentucky Children’s Hospital University of Kentucky, 800 Rose St. Lexington, Ky., 40536 (859) 323-5000 / (800) 333-8874 Established in 1957, UK HealthCare consists of the medical, nursing, health sciences, public health, dental and pharmacy patient care activities of the University of Kentucky, and in several off-site locations. https://ukhealthcare.uky.edu/kentucky-childrenshospital Kids Center for Pediatric Therapies 982 Eastern Parkway, Louisville, Ky., 40217 (502) 635-6397 9810 Bluegrass Parkway, Louisville, Ky., 40299 (502) 584-9781 Since 1959, the Kids Center for Pediatric Therapies has been helping children with special needs. Each week the Center provides outpatient PT, ST, and OT services to 300 children facing challenges such as autism, Down syndrome, spina bifida and cerebral palsy. The Center also has a pediatric dietician and psychologist on staff to work with families. www.kidscenterky.org The Kidz Club Bowling Green: 1347 Ky., Hwy. 185, Suite 2, Bowling Green, Ky., 42101 / (270) 746-0333 Erlanger: 527 Watson Road, Erlanger, Ky., 41018 (859) 727-0700 Lexington: 2200 Regency Road Lexington Ky., 40503 / (859) 224-0799 Louisville: 7140 Preston Highway Louisville, Ky., 40219 / (502) 368-9318 Louisville: 225 N. 25th St. Louisville, Ky., 40212 / (502) 365-2426 Louisville: 1517 Gagel Ave. Louisville, Ky., 40216 / (502) 409-5316 The Kidz Club is a Prescribed Pediatric Extended Care (PPEC) facility. A PPEC is a link in the continuum of care for children that provides daily skilled nursing care, enrichment activities, therapies and other supports. Since 1996, families and providers have trusted The Kidz Club PPEC to provide the safest, highest quality nursing care in a fun, stimulating environment for children from birth to under 21 years of age who have a medical complexity. The Kidz Club has locations in Kentucky, Florida and Texas. Services are covered by Medicaid. No out-of-pocket cost to families. / www.thekidzclub.com

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Resource List 2024 The Kid SpOt Center (Pediatric Therapy) Campbellsville: 50 Gene Cash Road, Campbellsville, Ky., 42718 / (270) 465-7768 Elizabethtown: 107 Financial Dr. Elizabethtown, Ky., 42701 / (270) 763-8225 Bowling Green: 980 Morgantown Road, Bowling Green, Ky., 42104 / (270) 495-1312 Somerset: 200 Tower Circle Somerset, Ky., 42503 / (606) 416-5139 Grayson: 308 Horton St., Suite B Grayson, Ky., 41143 / (270) 283-3845 Louisville: 10019 Forest Green Blvd.

Louisville, Ky., 40223 / (502) 893-1380 The Kid SpOt Center provides supports to families of children with disabilities. Services include Speech Therapy, Occupational Therapy, Physical Therapy, Positive Behavior Supports, ABA, Mental Health Counseling, Community Living Supports, Social Skills, Targeted Case Management, Medication Management and Neuropsychology Evaluations. www.thekidspotcenter.com Kraska & Associates, Inc. 437 Lewis Hargett Circle, Suite 120 Lexington, Ky., 40503 / (859) 219-0956 Private practice providing occupational and speech therapy services. Family-centered approach.

Areas of specialty include sensory integration, sensory processing disorder, fine motor/handwriting, dyspraxia, autism, Asperger’s, articulation, phonological disorders and reading programs. www.kraskaandassociates.com Marshall Pediatric Therapy Lexington: 3499 Blazer Parkway, Suite 170 Lexington, Ky., 40509 / (859) 327-3033 Nicholasville: 799 Brannon Road Nicholasville, Ky., 40356 / (859) 224-2273 Georgetown: 117 East Jefferson Georgetown, Ky., 40324 / (502) 316-6180 Richmond: 1013 Center Dr. Richmond, Ky., 40475 / (859) 444-5330 Offers occupational and speech therapy for Lexington and surrounding counties. The practice accepts EPSDT, most private insurance plans, participates with Kentucky First Steps, and offers payment plans and provides need-based scholarships from birth to age 21. https://marshallpediatrictherapy.com Multiple Sclerosis Society Indiana-Kentucky-Tennessee Chapter 214 Overlook Circle, Suite 153 Brentwood, Tenn., 37027 / (800) 344-4867 www.nationalmssociety.org/Chapters/TNS NorthKey Community Care

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Multiple locations in Northern Kentucky (859) 578-3200 / (877) 331-3292 NorthKey is paving the way to a community that is healthy in mind and spirit in the Cincinnati and Northern Kentucky areas with a comprehensive continuum of mental health, developmental disability and substance abuse care. www.northkey.org/services/developmentaldisabilities-services Pediatric Occupational Therapy & Parent Coaching (OT Time) 127 W. 4th St., Frankfort, Ky., 40601 (502) 682-4451 OT Time provides school-based, occupational therapy services as well as parent coaching services.

Parent coaching is an adult learning strategy where a plan is collaboratively developed that considers the family’s values and lifestyle. Parents or guardians learn problem-solving skills to create positive environments for themselves and their children to allow for participation in valued activities. www.ottimetoday.com University of Louisville Department of Pediatrics 571 S. Floyd St., Suite 432 Louisville, Ky., 40202 / (502) 852-8600 Provides center-based and outreach diagnostic evaluations and treatment to infants and children with, or at risk for, developmental disabilities, autism, organic behavior disorders (ADHD) and learning disabilities. Serves children and adolescents with developmental disabilities and/or feeding disorders.

Comprehensive care of children with inborn errors of metabolism is provided through medical and dietary management and enzyme infusion. https://louisville.edu/medicine/departments/ pediatrics/divisions/developmental-behavioralgenetics Norton Children’s Development Center 411 E. Chestnut St., Louisville, Ky., 40202 (502) 588-0850 Norton Children’s Development Center, affiliated with the UofL School of Medicine, provides pediatric developmental-behavioral care for children with a wide range of developmental and behavioral conditions. Services include multidisciplinary evaluations for diagnosing complex disorders of behavior and development; feeding therapy; neuropsychological evaluations; behavior therapy with parent coaching; and medication management. https://nortonchildrens.com/services/developmentalbehavioral-pediatrics/ Norton Children’s Hospital 231 E. Chestnut St., Louisville, Ky., 40402

(502) 629-6000 Norton Children’s Hospital is a 253-bed teaching facility and serves as a referral center for central and western Kentucky and southern Indiana. The hospital is also the primary pediatric teaching hospital for the University of Louisville health sciences program. Each year there are approximately 8,000 admissions, 50,000 Emergency Department visits and 10,500 outpatient clinic visits. nortonchildrens.com/location/hospitals/nortonchildrens-hospital Passport Health Plan 5100 Commerce Crossings Drive, Louisville, Ky., 40229 / (800) 578-0603 / TDD (800) 691-5566 Passport Health Plan is a Medicaid managed care plan that has been coordinating health services to qualified members since 1997. Passport is community-based and provider-sponsored, and the only non-profit Medicaid health plan available to members in Kentucky. The mission is to “improve the health and quality of life of our members,” which Passport follows every day through exceptional customer service, a large provider network, and case and disease management programs. www.molinahealthcare.com/members/ky/en-us/ Pages/home.aspx Ronald McDonald House Charities of the Bluegrass 1300 Sports Center Drive, Lexington, Ky., 40502 (859) 268-0757 This charity exists to create and support programs that directly improve the health and well-being of children and to strengthen families by keeping them together in times of medical need. www.rmhclexington.com Shriners Hospitals for Children 110 Conn Terrace, Lexington, Ky., 40508 (859) 407-5968 Shriners Hospitals for Children has a mission to provide the highest quality care to children with orthopedic or neuromusculoskeletal disorders and diseases within a compassionate, family-centered and collaborative care environment. www.shrinershospitalsforchildren.org/lexington SKY Pediatric Dentistry Dr. Mandy Ashley, DMD, MsEd, MS 234 Natchez Trace Ave., Bowling Green, Ky., 42103 (270) 715-5437 Dentistry for children and teens with special needs. www.skypediatricdentistry.com Square One Specialists in Child and Adolescent Development 6440 Dutchmans Parkway, Louisville, Ky., 40205

Resource List 2024 (502) 896-2606 / info@squareonemd.com Comprehensive medical, psychological, psychiatric, educational, and speech-language evaluations are offered to help understand differences that impact children’s and adolescents’ development, behaviors and emotions. www.squareonemd.com Wendell Foster Comprehensive Outpatient Rehabilitation Facility (CORF) 815 Triplett St., Owensboro, Ky., 42303 (270) 689-1738 CORF offers Physical, Occupational, and Speech Therapies. Services include the evaluation and treatment of people of all ages, from birth through adulthood. CORF therapists specialize in treating developmental and intellectual disabilities, as well as rare disorders. Depending on coverage, Medicaid, Medicare and private insurance may pay for expenses related to the services. https://wendellfoster.org/outpatient-therapies/

MENTAL HEALTH PROVIDERS 360 Mental Health Services 1517 Nicholasville Road, Suite 302, Lexington, Ky., 40503 / (859) 948-9471 drtim@360mentalhealth.com Dr. Tim Houchin is one of only approximately 200 physicians triple-board certified in child/adolescent psychiatry, general psychiatry and forensic psychiatry.

He believes in a holistic, 360-degree approach to evaluating and treating both children and adults. www.360mentalhealth.com Build Inclusion, Inc. P.O. Box 23030, Lexington, Ky., 40523 (859) 221-6689 Build Inclusion promotes intentional inclusion, access, and opportunities through community & family education, engagement, and most of all, meaningful, competitive employment. Build Inclusion facilitates success for individuals in transition to adulthood in preparing for and fully participating in this next stage of their lives. Clinical social work services are also available for the ID/DD population. www.buildinclusion.org Children and Family Counseling Associates 100 S. Main St., Harrodsburg, Ky., 40330 (859) 733-9241 Additional offices in Lexington, Danville, Richmond and Stanford

Children and Family Counseling Associates has been serving adults, children, schools, and families in Central Kentucky for more than 20 years. CAFCA provides a wide variety of mental health services, including individual and group therapy, psychological evaluations and assessments, EMDR therapy, after-school programs, adult day training, case management and more. www.cafcainc.com Lexington Counseling & Psychiatry Offices in Lexington, Richmond and Frankfort (859) 338-0466 Counseling and therapy for individuals, families and relationships. www.counselinglexingtonky.com/?msclkid=9c90bf5 8c13e14400c22daf0ff086c91 Louisville ADHD / Dr. F. Allen Walker 11405 Park Road, Suite 220, Louisville, Ky., 40223 (502) 384-ADHD (2343) www.louisvilleadhd.com Mental Health America MHA is the nation’s leading community-based non-profit dedicated to addressing the needs of those living with mental illness and to promoting the overall mental health of all Americans. The work is driven by a commitment to promote mental health as a critical part of overall wellness, including prevention services for all; early identification and intervention for those at risk; integrated care, services and supports for those who need it; with recovery as the goal.

Regional Offices: Mental Health America of Kentucky 1588 Leestown Road, Suite 130 #279 Lexington Ky., 40511 / (859) 684-7778 mhaky@mhaky.org / www.mhaky.org Mental Health America of Northern Kentucky & Southwest Ohio 1002 Monmouth St., Newport, Ky., 41071 (859) 431-1077 www.mhanky.org NAMI (National Alliance for the Mentally Ill) 4301 Wilson Blvd., Suite 300 Arlington, Va., 22203 (703) 524-7600 / (888) 999-6264 NAMI is the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness. / www.nami.org NAMI Kentucky 201 Mechanic St., Suite 219, Lexington, Ky., 40507 (859) 339-3556 / www.namiky.org Regional Offices:

Bowling Green Rebecca Coursey: bowlinggreennami@gmail.com Buffalo Trace Sharon Darnell: namiky.buffalotrace@outlook.com Butler County Christy Havens: chavens4295@gmail.com Lexington Phill Gunning: Pgunning@namilex.org Louisville Nancy Brooks: nancy.brooks@namilouisville.org Madison County Rob Milde: robmilde@gmail.com Morehead Carol Mauriello: camauriello@moreheadstate.edu Murray Brenda Benson: Brenda.Benson@murraystate.edu Northern Kentucky Michelle McMullin: Michelle@naminky.org Paducah Jana Wilson: Jwilson@namiky.org Winchester/Clark Brenda Harrington: Bebe1@bellsouth.net New Vista Regional Office: 1351 Newtown Pike Lexington, Ky., 40511 (859) 253-1686 / (859) 272-7483 24-hour help line (800) 928-8000 New Vista serves children and adults in 17 Central Kentucky counties through mental health, substance use, intellectual and developmental disability and primary care services. Individuals and families receive services at the location nearest to them. New Vista has four anchor centers providing a full range of services in Boyle, Fayette, Madison and Scott Counties. The anchor centers are surrounded by satellite offices in neighboring counties. www.newvista.org

MISCELLANEOUS NuMotion Bowling Green 1960 Louisville Road, Suite 3A Bowling Green, Ky., 42101 / (270) 904-4934 Lexington 973 Beasley St., Suite 110, Lexington, Ky., 40509 (859) 225-3624 Louisville 11380 Bluegrass Parkway, Jeffersontown, Ky., 40299 / (502) 266-9061 With a strong local focus, NuMotion aims to be the most responsive and innovative complex wheelchair

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Resource List 2024 company with which to do business. www.numotion.com Superior Van & Mobility 761 E. New Circle Road, Lexington, Ky., 40505 (859) 253-1832 1506 Lakeshore Court, Louisville, Ky., 40223 (502) 447-8267 Superior Van & Mobility provides mobility solutions for the consumer and commercial transportation industry. Member of the National Mobility Equipment Dealers Association and a participant in NMEDAs Quality Assurance Program, which is recognition reserved for the highest quality mobility dealers. www.superiorvan.com

SCHOOLS Academy for Individual Excellence 3101 Bluebird Lane, Louisville, Ky., 40299 (502) 267-6187 / awroblewski@Aiexcellence.com www.aiexcellence.com Child Development Center of the Bluegrass 290 Alumni Drive, Lexington, Ky., 40503 (859) 218-2322 Five-Star rated preschool for children with and without disabilities. Services provided include assessment, evaluations, and speech, physical and occupational therapy. www.cdcbg.org Christian Academy of Louisville/Providence School 700 S. English Station Road, Louisville, Ky., 40245 (502) 244-3225 ext 1020 Mindy Crawford: (502) 244-3225 ext. 1020 CAL/Providence School serves children preschool through 8th grade with Down syndrome within an inclusive environment to promote language, social and spiritual goals. Students also receive small-group instruction to address individual goals. Curriculum and structure are designed to promote spiritual, cognitive, adaptive, language, motor and self-help skills. A Family Service Plan/IFSP is written with each family specific to the needs of their child. The school works in relationship with Down Syndrome of Louisville. The school is adding a new grade each school year.

Providence will serve K-12 by the 2025-2026 school year. www.caschools.us/down-syndrome-providenceschool

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The dePaul School 1925 Duker Ave., Louisville, Ky., 40205 (502) 459-6131 Teaching students with learning differences how to learn, how to become independent, and how to become successful. www.depaulschool.org Growing Together Preschool, Inc. 599 Lima Drive, Lexington, Ky., 40511 (859) 255-4056 Has offered nurturing early child care and education services to children with and without disabilities and other special needs in an inclusive environment since 1982. Additional services include developmental screenings and assessment; behavior consultations; and physical, occupational and speech therapy. Teachers have experience working with children of varying abilities and advantages, and integrating recommended therapeutic practices into the classroom. GTP is accredited by the National Association for the Education of Young Children, rated 5 STARS through KY ALL STARS, and offers a Kentucky Proud farm to preschool menu. www.gtplex.org The Kidz Club Bowling Green: 1347 Kentucky Hwy. 185, Suite 2, Bowling Green, Ky., 42101 / (270) 746-0333 Erlanger: 527 Watson Road Erlanger, Ky., 41018 / (859) 727-0700 Lexington: 2200 Regency Road Lexington Ky., 40503 / (859) 224-0799 Louisville: 7140 Preston Highway Louisville, Ky., 40219 / (502) 368-9318 Louisville: 225 N. 25th St. Louisville, Ky., 40212 / (502) 365-2426 Louisville: 1517 Gagel Ave. Louisville, Ky., 40216 / (502) 409-5316 The Kidz Club is a Prescribed Pediatric Extended Care (PPEC) facility. A PPEC is a link in the continuum of care for children that provides daily skilled nursing care, enrichment activities, therapies and other supports. Since 1996, families and providers have trusted The Kidz Club PPEC to provide the safest, highest quality nursing care in a fun, stimulating environment for children from birth to under 21 years of age who have a medical complexity. The Kidz Club has locations in Kentucky, Florida and Texas. Services are covered by Medicaid. No out-of-pocket cost to families. www.thekidzclub.com KORE Academy Tates Creek Christian Church 3150 Tates Creek Road, Lexington, Ky., 40502 (859) 971-7129

School for children with learning differences for grades K-12. www.koreacademy.org Cincinnati Reading Center 9402 Towne Square Ave., Cincinnati, Ohio, 45242 (513) 531-7400 / jeff@langsfordcenter.com 2520 Bardstown Road, Louisville, Ky., 40205 (502) 473-7000 The Langsford difference – what separates the program from traditional “tutoring” programs – is that at Langsford professionals determine and address the underlying learning processes that cause learning difficulties. Langsford helps people of all ages who are doing well in school but exerting disproportional effort, as well as those who have been considered learning disabled or dyslexic. www.langsfordcenter.com The Lexington School’s The Learning Center 1050 Lane Allen Road, Lexington, Ky., 40504 (859) 278-0501 / shinard@thelexingtonschool.org The Learning Center provides a unique and essential service to children with language-based differences by offering an alternative to traditional classrooms. By creating a teaching environment that eliminates the major obstacles to learning, students are able to close the gap between achievement and their potential. Teacher-student ratios of 1:4 allow for individualized instruction in the core areas of greatest need. In addition, low student-teacher ratios will be maintained in other subjects such as science, social studies, computer skills, specials and social skills. www.thelexingtonschool.org/the-learning-center Meredith-Dunn School 3023 Melbourne Avenue, Louisville, Ky., 40220 (502) 456-5819 dcrowe@meredithdunnschool.org Serving families in the Louisville Metro area for over 50 years. Offering prescriptive, multi-sensory instruction for children with learning differences. www.meredithdunnschool.org The Provision School & Family Counseling Center 301 Harvard Drive, Lexington, Ky., 40517 (859) 396-0644 The Provision School is a faith-based, nonprofit, therapeutic learning environment that encompasses the benefits of counseling services and individualized education for students of varying needs and abilities. www.theprovision.org Sproutlings Pediatric Day Care & Preschool Kosair Charities Center

Resource List 2024 3800 Tom Larimore Lane, Masonic Home, Ky., 40041 / (502) 753-8222 Sproutlings is a dual-licensed program and has spaces for medically fragile children and children in traditional day care or preschool. Staffed by Registered Nurses, Certified Nursing Assistants, teachers and teacher aides, and caring for a wide variety of medical conditions. Medicaid and private insurance are accepted. www.SproutlingsDayCare.com Stewart Home School 4200 Lawrenceburg Road, Frankfort, Ky., 40601 (502) 227-4821 Discover a residential school that offers lifelong learning, a postsecondary experience, the opportunity to attain a GED, vocational training and countless social and recreational activities among friends from all around the world. www.stewarthome.com Summit Academy of Louisville 11508 Main St., Louisville, Ky., 40243 (502) 244-7090 dstrothman@summit-academy.org Summit Academy is an independent, nonprofit K-12 school in Louisville. Summit Academy provides a transformative educational experience for students who learn differently by cultivating each student’s academic, social and emotional success in a vibrant and compassionate environment.

Summit provides a place where each student’s learning challenges are understood and met using a whole child approach; a place where the school celebrates and develops children’s strengths, as well as addressing their area of difficulty. It’s a safe place where each young learner is treated and educated as an individual – in an atmosphere of caring and respect that allows students to succeed. www.summit-academy.org

SERVICE DOGS Paws With Purpose P.O. Box 5458, Louisville, Ky., 40255 (502) 689-0804 / Info@PawsWithPurpose.org pawswithpurpose.org Wildcat Service Dogs University of Kentucky 210 E. High St., P.O. Box 612 Lexington, Ky., 40507 wildcatservicedogs@gmail.com https://uky.campuslabs.com/engage/organization/ wildcatservicedogs

SERVICE PROVIDERS (COMMUNITY AND RESIDENTIAL) For a complete list of Service Providers licensed in Kentucky please see: https://providerdirectory.dbhdid.ky.gov/ BrightSpring Health Services 805 N. Whittington Parkway, Louisville, Ky., 40222 (800) 866-0860 / (502) 394-2100 Provider of comprehensive home and communitybased health services to complex populations in need of specialized care. www.brightspringhealth.com Cedar Lake 9901 Linn Station Road, Suite 901 Louisville, Ky., 40222 / (502) 495-4946 Cedar Lake is committed to providing the highest quality of services to the people it supports. To demonstrate its commitment to the development of a compassionate and capable workforce, Cedar Lake has launched a career development program with ongoing educational opportunities to further sharpen people’s skills. In doing so, Cedar Lake employees develop a heightened sensitivity – or compassion – for the people they support and a clear understanding of how they can best support these individuals to live a life filled with abundant possibilities. www.cedarlake.org Mattingly Edge 1930 Bishop Lane, Suite 1001, Louisville, Ky., 40218 / (502) 451-6200 Mattingly Edge cultivates partnerships that enable people with disabilities to thrive at work, at home and in relationships. The mission is based on the belief that people with disabilities have the right to the same privileges and responsibilities as other citizens.

Communities are better when everyone is included.

“Real Jobs. Real Homes. Real Friends. Real Lives.” www.mattinglyedge.org New Perceptions 1 Sperti Drive, Edgewood, Ky., 41017 (859) 344-9322 This non-profit organization has been dedicated to enriching lives of those with intellectual/ developmental disabilities since 1952. newperceptions.org New Vista Regional Office: 1351 Newtown Pike

Lexington, Ky., 40511 (859) 253-1686 / (859) 272-7483 24-hour help line (800) 928-8000 New Vista serves children and adults in 17 Central Kentucky counties through mental health, substance use, intellectual and developmental disability and primary care services. Individuals and families receive services at the location nearest to them. New Vista has four anchor centers providing a full range of services in Boyle, Fayette, Madison and Scott Counties. The anchor centers are surrounded by satellite offices in neighboring counties. newvista.org Options Unlimited Inc. 205 Castlerock Drive, Shepherdsville, Ky., 40165 (502) 955-7271 / t.carr@optionsunlimitedinc.org Changing lives by helping people with disabilities become as independent as possible. Services include supported employment, school transitions program/Pre-ETS, TLC training program at UPS, adult day program, deaf & hard of hearing. Serving Bullitt, Shelby, Spencer and Jefferson counties. www.optionsunlimitedinc.org Pathways P.O. Box 790, Ashland, Ky., 41105 (606) 324-1141 / (800) 562-8909 Pathways assists in obtaining individual and family-determined supports for persons who have developmental disabilities or intellectual disabilities.

Goals are to serve and enhance opportunities for making choices that promote inclusion as a valued citizen in all meaningful phases of community life. www.pathways-ky.org R.E.A.C.H of Louisville 501 Park Ave., Louisville, Ky., 40208 (502) 585-1911 REACH provides an exemplary Supports for Community Living program with support for individuals and families through highly qualified support staff, which includes psychologists, social workers, crisis support managers, recreational specialists and special educators. www.reachoflouisville.com Easter Seals Redwood 71 Orphanage Road, Ft. Mitchell, Ky., 41017 (859) 331-0880 A non-profit organization funded by United Way, Redwood guides children and adults with multiple and severe disabilities to achieve independence and to reach their highest potential throughout their lives, by providing enriching educational, therapeutic and vocational services. www.redwoodnky.org

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Resource List 2024 STRIDE 150 Maryland Ave., Winchester, Ky., 40391 (859) 744-0370 STRIDE serves individuals who have a learning or developmental disability and are at least 16 years of age. Daily programming includes cooking classes, dances, Special Olympic activities, daily living skills classes and much more in an effort to improve the quality of life for participants. All participants are expected to live up to their responsibilities at home, work and in the STRIDE program. Motto: “We have an obligation to expect the best out of our participants and try to help them to continue to improve their skills.” www.strideky.org Wendell Foster 815 Triplet St., Owensboro, Ky., 42303 (270) 683-4517 Wendell Foster’s mission is to empower people with disabilities to realize their dreams and potential.

For 76 years, Wendell Foster has provided residential living options to children and adults with developmental disabilities. Residential services include 24-hour medical care in the Intermediate Care Facility (ICF), community living options through Supports for Community Living (SCL), and independent living, both on Wendell Foster’s campus and in the community. Wendell Foster works with families to find the setting that best fits the needs of their loved one. https://wendellfoster.org/residential-living/ Zoom Group 1904 Embassy Square Blvd., Louisville, Ky., 40299 (502) 581-0658 Zoom Group has been providing supports for individuals with disabilities for over 30 years. Zoom Group’s mission is to assist persons with disabilities to explore, create, and realize their journey. Zoom Group strives to create a community that is enriched by including and valuing persons with disabilities. www.zoomgroup.org

SPEECH, LANGUAGE AND HEARING Central Kentucky Interpreter Referral, Inc. 212 South Second St., Danville, Ky., 40422 (859) 236-9888 / VP 859-439-0070 easytoreserve@gmail.com CKIR is a leading provider of interpreting services in Kentucky, including American Sign Language and Spanish interpreting services. CKIR is a not-for-

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profit agency that provides in-person and remote interpreting services (if applicable). CKIR employs professional, certified and licensed interpreters for a variety of settings, which include, but not limited to, general community, medical, mental health, industrial, education, religious, and social services. www.ckira.org Heuser Hearing Institute 117 E. Kentucky St., Louisville, Ky., 40203 (502) 584-3573 Heuser Hearing Institute (HHI) is a multi-specialty non-profit campus promoting the needs of children and adults with disorders of hearing and balance.

The organization has served Louisville and many of the surrounding Kentucky and Indiana communities since 1948. www.thehearinginstitute.org Kentucky School for the Deaf 303 South Second St., Danville, Ky., 40422 (859) 239-7017 Ensures that children and youth who are deaf or hard of hearing have educational opportunities to develop their potential to become educated, life-long learners and productive citizens. www.ksd.k12.ky.us Kentucky Commission on the Deaf and Hard of Hearing 632 Versailles Road, Frankfort, Ky., 40601 (800) 372-2907 / kcdhh@mail.state.ky.us www.kcdhh.ky.gov/ Kentucky Hands & Voices P.O. Box 43914, Louisville, Ky., 40253 (888) 398-5030 / info@kyhandsandvoices.org Hands & Voices is a non-profit, parent-driven national organization dedicated to supporting families of children who are deaf or hard of hearing. The organization is non-biased about communication methodologies and believes that families can make the best choices for their child if they have access to good information and support. The group consists of parents of ASL signers, cued speech users, kids with cochlear implants and total communicators. www.kyhandsandvoices.org Kentucky Speech-Language-Hearing Association 838 E. High St., Suite 263, Lexington, Ky., 40502 (800) 837-2446 / khsaoffice@khsa.info The mission is to enhance the provision of quality services to persons with communication disorders and their families. KSHA provides broad-based education opportunities, public awareness and policy development initiatives, and supports professionals

in speech-language pathology and audiology by promoting the highest standards for service providers. www.ksha.info The Hearing and Speech Center 350 Henry Clay Blvd., Lexington, Ky., 40502 (859) 268-4545 Provides diagnostic, therapeutic and educational services for individuals with hearing, speech and language impairments. https://hscky.org St. Rita School for the Deaf 1720 Glendale Milford Road, Cincinnati, Ohio, 45215 / (513) 771-7600 www.srsdeaf.org

SPINA BIFIDA Cardinal Hill Center for Outpatient Services 2050 Versailles Road, Lexington, Ky., 40504 (859) 254-5701 https://encompasshealth.com/locations/ cardinalhillrehab Kids Center for Pediatric Therapies 982 Eastern Parkway, Louisville, Ky., 40217 (502) 635-6397 9810 Bluegrass Parkway, Louisville, Ky., 40299 (502) 584-9781 Since 1959, the Kids Center for Pediatric Therapies has been helping children with special needs. Each week the Center provides outpatient PT, ST, and OT services to 300 children facing challenges such as autism, Down syndrome, spina bifida and cerebral palsy. The Center also has a pediatric dietician and psychologist on staff to work with families. / www.kidscenterky.org Spina Bifida Association of Kentucky Kosair Charities, 982 Eastern Parkway, Suite 18 Louisville, Ky., 40217 (502) 637-7363 / sbak@sbak.org The Spina Bifida Association of Kentucky is a resource center for children, their families and adults affected by Spina Bifida. SBAK educates parents how to be the best advocate for their child, and helps children and adults overcome physical, cognitive and social challenges to become successful and independent. The mission is to promote the prevention of Spina Bifida and enhance the lives of all those affected. / www.sbak.org

Resource List 2024 Shriners Hospitals for Children 110 Conn Terrace, Lexington, Ky., 40508 (859) 407-5968 Shriners Hospitals for Children has a mission to provide the highest quality care to children with orthopedic or neuromusculoskeletal disorders and diseases within a compassionate, family-centered and collaborative care environment. www.shrinershospitalsforchildren.org/lexington

VISION Cincinnati Association for the Blind & Visually Impaired 2045 Gilbert Ave., Cincinnati, Ohio, 45202 (513) 221-8558 / info@cincyblind.org Cincinnati Association for the Blind and Visually Impaired (CABVI) is a private, non-profit organization offering comprehensive vision rehabilitation services for people of all ages who are blind or visually impaired. cincyblind.org/about Clovernook Center for the Blind/Visually Impaired 7000 Hamilton Avenue, Cincinnati, Ohio 45231 (513) 522-3860 / fd@clovernook.org Clovernook has proudly served women, men and children for more than 100 years. This rich history provides the backdrop for today’s progressive and caring campus-like environment where the Center remains dedicated to adults and youth who are blind or visually impaired. / clovernook.org Kentucky Vocational Rehabilitation, Blind Services Division Mayo-Underwood Building 500 Mero St., 4th Floor NE, Frankfort, Ky., 40601 (502) 564-4440 / (800) 372-7172 The mission is to provide opportunities for employment and independence to individuals with visual disabilities. The Division serves Kentuckians who are visually impaired or blind and assists individuals in obtaining and maintaining employment, economic self-sufficiency and independence with complete integration into society. The Blind Services Section provides statewide services to all 120 counties and has 10 field offices located throughout Kentucky in Ashland, Bowling Green, Covington, Elizabethtown, Lexington, Louisville, Owensboro, Paducah, Prestonsburg and Somerset. https://kcc.ky.gov/Vocational-Rehabilitation/ seeking-services/Blind-Services/Pages/BlindServices-Division.aspx

Kentucky School for the Blind Division of the Ky. Department of Education Office of Special Instructional Services 1867 Frankfort Ave., Louisville, Ky., 40206 (502) 897-1583 A K-12 public school serving Kentucky students who are blind and visually impaired. The school offers a Short Course program (1-12 weeks) of specialized instruction available to students throughout the school year. Summer school programs are offered in June and July. www.ksb.k12.ky.us Kentucky School for the Blind Outreach Services Available Statewide 1867 Frankfort Ave., Louisville, Ky., 40206 (502) 897-1583 ext. 7714 Outreach works in partnership with the Educational Cooperatives to facilitate expansion of regional services. KSB Outreach Consultants are assigned to each of the Educational Cooperatives as points of contact for services and programs offered by KSB. The Director of Special Education within local school districts may make referrals for services to the assigned KSB Outreach Consultant for their cooperative or by contacting KSB Director of Outreach. The Outreach department supports proficient student performance by assisting local school districts, including KSB and the Kentucky School for the Deaf, in reducing barriers to learning associated with a vision loss. It also provides students access to the general curriculum, the Kentucky Core Academic Standards, and Expanded Core Curriculum for Students with Visual Impairments. www.ksb.kyschools.us/Content/36 Neuro-Visual Performance Institute (Formerly Children’s Vision and Learning Center, Psc) 105 Crossfield Drive, Versailles, Ky., 40383 (859) 879-0089 In addition to general optometric services, Family Eyecare offers unique programs such as Vision Therapy for children experiencing difficulty with reading and/or underachievement at school.

Children in these programs average more than a 3-year improvement in performance in 10 to 15 weeks. https://eyedoctor.io/optician/childrens-vision-andlearning-center-psc-versailles-ky/ NFB-NEWSLINE® KENTUCKY (877) 410-4008 A Project of the National Federation of the Blind of Kentucky. Free audio information service to

people who cannot use regular newsprint. More than 500 publications are now available, including more than 80 magazines, and national and International news. Spanish-language newspapers are also available. https://nfbnewsline-ky.org Radio Eye Lexington: 1733 Russell Cave Road, Lexington, Ky., 40505 / (859) 422-6390 / (800) 238-5193 info@radioeye.org Louisville: Family Library of Visually Impaired Preschool 1906 Goldsmith Lane, Louisville, Ky., 40218 (502) 509-5184 Radio Eye broadcasts the reading of current news, public service and general interest programming to listeners and others who are blind and print-disabled. Radio Eye, which serves Lexington, Louisville and parts of Eastern Kentucky, strives to produce high-quality programming designed to help the listening audience lead enriched, productive and independent lives. www.radioeye.org Silver Circles, Inc. 2396 New Shepherdsville Road Bardstown, Ky., 40004 (859) 489-7773 / (812) 273-6986 Catherine C. Barnes, Director & Irlen Diagnostician The Irlen Method uses colored overlays and precision tinted filters, worn as glasses, to reduce or eliminate perceptual difficulties and light sensitivity. www.silvercirclesinc.com Visually Impaired Preschool Services (VIPS) Greater Louisville 1906 Goldsmith Lane, Louisville, Ky., 40218 (888) 636-8477 Central Kentucky 350 Henry Clay Blvd., Lexington, Ky., 40502 (859) 276-0335 / (888) 254-8477 The mission of Visually Impaired Preschool Services is to offer appropriate services to infants, toddlers and preschoolers who are visually impaired or blind and to their families; and to maximize each child’s development potential through direct services, advocacy and community education. VIPS staff includes certified teachers who specialize in early childhood education, visual impairment, O&M, and special education. Several staff members are also parents of visually impaired children. www.vips.org n

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The Developmental Disabilities Assistance and Bill of Rights Act of 2000

IT’S THE LAW! On October 30, 2000, Congress Passed Law 106-402. It States:

Congress finds that – (1) disability is a natural part of the human experience that does not diminish the right of individuals with developmental disabilities to live independently, to exert control and choice over their own lives, and to fully participate in and contribute to their communities through full integration and inclusion in the economic, political, social, cultural, and educational mainstream of United States society.

OUR MISSION The Commonwealth Council on Developmental Disabilities will create systemic change in the Commonwealth of Kentucky that empowers individuals with developmental disabilities to achieve full citizenship and inclusion in the community through advocacy, capacity building and systemic change.

The CCDD will enable individuals with developmental disabilities to exercise self-determination, be independent, be productive, and be integrated and included in all facets of community life.

GET INVOLVED TODAY – Join the CCDD Info: (502) 564-7841 or visit www.ccdd.ky.gov