Exceptional Family Magazine Summer/Fall 2022

the economic, political, social,

of United States

Letter From the CCDD Grant Maintains Dynamic Lifestyle

For Grant Gupton, born with Down Syndrome and the survivor of 26 childhood surgeries, his advocacy stretches beyond the borders of his hometown in Louisville to the whole country.

With his father, Garry, the two make speeches around the nation at fund-raisers for churches and nonprofit organizations.

Grant, who completed high school with a certificate of attendance, is an excellent reader, and delivers his speeches while making eye contact with his audiences, a process that grati fies Grant.

bowel syndrome. Seven days after birth, he underwent emergency surgery for a blockage in his stomach and a few months later had another emergency surgery after one-third of his small intestine had died.

What followed was a life and death struggle and two-plus years in the

ward to open up his sinuses.

But Grant, 33, never looks back and leads a full, rich life. He works at the health club at the Southern Baptist Theological Seminary where his father is the marketing director.

HOW TO BECOME A MEMBER

On Wednesdays, Grant works at the Shine Café at Southeast Chris tian Church and has had a girlfriend, Macy Knights, since 2015.

CCDD Council members include people with developmental disabilities as well as family members and guardians of people with developmental disabilities.

Council members are expected to attend quarterly meetings that last two to three days, and other events throughout the year.

A member serves a three-year term and is limited to two terms of service.

Info: www.ccdd.ky.gov or (502) 564-7841

“I used to ask Grant if he had a good day today and he always said, ‘I have a good day everyday,’” Garry said.

“He is the most resilient person I’ve ever known and meets every challenge with enthusiasm.”

And Grant had his challenges in infancy after a diagnosis of short

hospital being fed by tubes.

Finally, at 2-and-a-half, he ate a salty French fry – his first solid food – and he hasn’t stopped since.

But at 3 he underwent open heart surgery to repair a valve, and finally had his breathing problems fixed at 18 when a plastic surgeon broke his cheek bones and pulled them for

Grant is also an avid golfer, a sport where he must think his way around the course, which stimulates his brain.

A member of the CCDD Council for five years, Grant embraces his role as a self-advocate.

“I like to be en gaged with people and the CCDD encourages me to do that,” he said. “No typical person can understand what’s it’s like for people like us with special needs.

“That’s why it’s important for us to share our stories and concerns with the people who can help people like me do their very best in life, and the CCDD does that.” n

Grant Gupton with girlfriend Macy Knights

JOIN OUR TEAM

The Council consists of people like you. Members include people with developmental disabilities plus family members and guardians of people with developmental disabilities.

The mission of the Commonwealth Council on Developmental Disabilities is to create systemic change in Kentucky that empowers individuals to achieve full citizenship and inclusion in the community through education, capacity building and advocacy.

Come Join Us!

If you want to affect policy, influence legislators and advocate for change, the CCDD is the place for you. Call today to learn how you can make a difference.

CCDD Gets New, Bigger Office Off I-64

The Commonwealth Council on Developmental Disabilities officially opened its new offices in Frankfort with an open house in August when the group’s Council held its most recent meeting.

The office is at 1024 Capital Center Drive, off Route 60, and consists of 4700 square feet on the first floor of a three-story building.

The 10 rooms include offices for CCDD staff, a copy room, kitchenette and huge

reception area. The new office is 400 square feet larger than the old office and is even better, according to staff member Carol Ann Tudor, because it has “a gorgeous conference room.”

“It is plenty big enough for our Council meetings and we have two additional conference rooms for committee and work team meetings,” she said.

Plus, the location is right off Interstate-64 making it convenient for those traveling from around the state. n

David DeSanctis Stars In Hallmark Romance Movie

Acting is a tough life. Just ask David DeSanctis. For his role in the Hallmark movie, “Color My World With Love,” DeSanctis not only had to kiss his pretty partner, Lily D. Moore, the two actors, each of whom has Down Syndrome, had to practice kissing beforehand.

“They brought a counselor in to teach us how to kiss on screen,” DeSanctis said. “It was fun.”

And so was the whole month-long shoot last spring in a small town outside Vancouver.

“The cast was like a family. We were always there for each other and supported each other,” DeSanctis said.

The story focuses on Brad (DeSanctis) and Kendall (Moore), who meet, fall in love and want to get married.

Kendall’s mother (Erica Durance), who is divorced from Kendall’s father, resists at first, fearing that her daughter doesn’t understand how fraught relationships can be. Eventually, Mom comes around and

the movie ends with a celebratory wedding of the young couple.

Reader Survey WINNER

Susie Cain

The winner of a $250 prize in the latest Reader Survey contest for this magazine is Susie Cain of the Graves County Public Library.

Cain worked 15 years as the children’s librarian until this summer when she become the book mobile librarian.

DeSanctis, 30 of Louisville, is a former member of the CCDD Council and works parttime as a spokesperson in videos for the National Down Syndrome Society. He’s also active in Down Syndrome of Louisville.

David DeSanctis

She is impressed with Exceptional Family Magazine, especially the lengthy Resource Directory and saw many library patrons with disabilities use the publication.

“I flipped through the magazine myself and saw all the resources. I thought it was great. Such a huge list,” she said.

The Hallmark movie was his second major acting experience but his first since 2014 when “Where Hope Grows” was released.

He was relieved that he still “had it” as an actor and wants to continue his career although he has no jobs lined up currently.

“I like acting but there are not enough movies being made about people like me with disabilities,” DeSanctis said.

“It is a big problem.”

Cain is an ideal winner of this award because in December 2021 she lost her home in Mayfield to the devastat ing tornado that ripped through town.

She, her husband and her 92-yearold mother-in-law lost everything and lived in a hotel for seven months until they finally bought a house.

“This will be wonderful,” Cain said about winning the $250 prize.

How will she spend it? “I guess I’ll buy a few do-dads that we need.” n

Carol Ann Tudor - Policy Analyst and Operations

Carol Ann has been with the Council since 2005. She serves as the main contact for

including submission of funding requests and requests for publications. She oversees office operations and provides administrative

Moore - Front Desk Manager

Nicole Maher - Self-Advocacy Coordinator

Council’s

for Self Advocacy initiatives and compliance with

federal mandate on self-advocacy programming. She facilitates the Self-Advoca cy work team

achieve the goals and objectives in the Five Year Plan. She has been with the Council for

years and has worked in the disability field for 16 years in a variety of different

has a daughter who has Down syndrome.

Justin Jeter - Public Policy Coordinator

Justin

policy

Council’s

formerly worked at the

Council of State

Vicki Goins - Fiscal Manager

first joined the Council in

in

to work for the State Budget Office. She came back to the Council in

and now serves as the Council’s Federal Financial Manager.

manages contracts, tracks Council Budget and assures com pliance with grant management regulations. She has worked in disabilities since 1993.

- Program Director

CCDD Council selects new leadership team

The Commonwealth Council on Developmental Disabilities has selected a new leadership team for the Council with Morgan Elliston named as Chairperson and Regina Watts as Vice-Chairperson.

Both are advocate representatives. Elliston lives in Frankfort and Watts is from Covington.

In addition, the Council has announced the addition of five new Council members. Jacob Cruz of Lexington and Matthew Lowry of Bardstown are self-advocates.

New state agency representatives are Barb Locker of the Department of Behavioral Health, Developmental and Intellectual Disabilities, and Ron O’Hair of the Office of Vocational Rehabilitation.

Sharon Raymond of Goshen is an advocate representative.

The Council also has formed a hiring committee to find a new executive director. Kellie McCain held that position from 2017 until she left in April of this year to take a position with the Department of Medicaid

Columbus, Ohio.

Former Executive Director Pat Seybold has filled in as the interim executive director for the second time since her retirement in 2014 after serving for 14 years as executive director.

The hiring committee consists of Morgan Elliston and Regina Watts plus Casey Allen, David Allgood, Laura Butler, Camille Collins, Grant Gupton, Barb Locker and Mark Rothel. The search and hiring process may last through the end of this year. n

TEENAGERS HIT IT OUT OF THE PARK

With CARAT-TOP Project, Perry County Students Make Local Park More Accessible

By John Lynch

Students from Perry County Central High School in Hazard not only transformed a local park into a more accessible public place for the community, they transformed themselves in the process.

The group of 16 students participated in CARAT-TOP, a project that brought together students of all abilities to learn new skills to help individuals and communities impacted by disability.

CARAT-TOP stands for Coordinating and Assisting the Reuse of Assistive Technology: Together One Priority, and is a project of Kentucky Appalachian Rural Rehabilitation Network (KARRN) with the support of the UK Center of Excellence in Rural Health.

Dr. Patrick Kitzman, a UK professor and the founder of KARRN in 2008, an swered a notice of funds available from the Commonwealth Council on Devel opmental Disabilities, which endorsed CARAT-TOP and provided funding.

The project ran from the spring into the summer and resulted in the trans formation of Perry County Park into a more accessible place. Everyone in volved also noticed the transformation in the students.

“I can’t express how quickly this group of young men and women transitioned from being students into leaders of this project,” said April Napier, a teacher at Perry County Central High. “I witnessed them shift from teenage students into innovators and difference makers in the community.

“It was great to see my students go from some who often needed help to be the ones to provide help. Now they’re the ones out there saying, this needs change and I’ll do it.”

Napier made her remarks in May at Perry County Park at a ceremony that celebrated the students and their work.

“CARAT-TOP was specifically created to empower the next generation to be change agents in their community,” Kitzman said. “By the end I think the students were able to begin seeing in themselves what we all have seen –that they are important, relevant and capable of making real change in their community.”

Here’s how the project started and what it accomplished.

Since founding KARRN, Kitzman has spent much of his time in Hazard. On garbage day, he saw abandoned wheelchairs and walkers in the trash and knew that these could be repaired and put back in use for free.

He had always wanted to engage

high school students in KARRN so he planned to teach students at Perry County Central High his repair skills, a process that began this fall.

From that idea, CARAT-TOP was born and formalized into a 10-week inter generational training program where students would work with elderly local residents in assistive technology repair.

The next part of the project was im proving access in the community. Perry County Central High students chose Perry County Park, which included miniature golf, a playground, pool and picnic area.

On their first visit, the students didn’t notice much. Then they were put in wheelchairs and given vision altering glasses.

“That was the aha moment,” Kitzman said.

With a new view of the park and its ac cessibility obstacles, students then drew up plans to make the park more accessi ble. They were divided into small groups and given $500 a group to implement their plans.

Above, Perry County Central students improve local park. Left, Luke Dixon, Contessa Combs, Morgan Dobson and Kayce Campbell stand next to wheelchair access they built.

But first, they needed permission from Perry County Judge Executive Scott Alexander. For two weeks, they created PowerPoint presentations and were schooled in the proper way to behave at a public hearing, including dressing appropriately.

Duly instructed, the students made their presentation and gained approval.

Next came the actual work of transfor mation, which the students did them selves with the following results:

▶ The group that chose the playground area removed the barrier wall in two sections of the playground and installed rubber tiles for wheelchair access.

▶ The miniature golf group painted the edges of the course to improve per ception of depths and sidewalk edges, and added flags with LED lighted poles and beepers so that individuals with visual and hearing impairments can bet ter access the course.

▶ The group that selected the pool area painted the edges of the pool to assist swimmers who have visual impairment. Students also suggested to the park crew that one side of the entry desk be lowered to a height that will en able anyone using a wheelchair to access forms or payment, and create a wheel chair accessible entrance into the area.

▶ The final group chose the picnic shelter area, where they painted the edges of the entrance and added two new benches that are wheelchair acces sible.

At the celebration in May, which featured speeches from state and local representatives, and school officials and teachers, the stu dents reflected on their experience.

Morgan Dobson explained the process of making the playground more acces sible.

“We tore out the barrier that went around the playground and applied these plastic tiles so that anybody in a wheelchair can roll up to the play ground, which they weren’t allowed to do because of the barrier. It will really

make a change,” she said.

Classmates Kaycee Campbell and Ken nedy Caudill recounted the changes in their perspectives.

“We worked on the pool for people in wheelchairs and vision problems,” Cau dill said. “Not everybody can go to the park and have the same opportunities, the same amount of fun, but our group is trying to fix that.”

Added Campbell: “I’ve not always looked at how accessible places are until this project. But now that I have started looking at that, it’s something that I notice everywhere I go.”

The work was incomplete by the end of the school year so students worked over the summer. When the project is complete, a plaque will be placed at the park recognizing the work of the students.

Praise for the project is universal, starting with Kitzman, who referred to student surveys before and after the project that showed a paradigm shift in student perspectives.

“The project worked better than we thought it would considering how fluid it was,” he said. “We saw the students go

from empathy and sympathy to advoca cy. Students started to get it and looked at their community differently.”

Fran Feltner, director of the UK Cen ter of Excellence in Rural Health, echoed those sentiments, saying, “The first year of CARAT-TOP has been so inspiring as our youth and community partners learn from each other to identify, plan and implement ideas to improve our community for people of all abilities.

“I was impressed by how our youth are becoming the leaders of tomorrow. Great things can and will happen.”

Hicks of the CCDD was gratified that the Council’s funding supported a proj ect in rural Kentucky, an often under served region.

“What’s great about the project is that it affects an area of Kentucky that really needs this assistance,” she said. “It allows these kids to build skills and relationships. Making a presentation to the county judge executive is a big deal for a high schooler.

“It’s not just kids with disabilities but all kids helping to make sure people with disabilities have full and better access.” n

CARAT-TOP PARTICIPANTS

STUDENTS HONOR ROLL

Keisha Hudson, Rural Project Manager

Caudill

Couch

Dixon

Jett

Jett

Ritchie

Luke Sandlin

Southwood

Wooton

Melissa Slone, Director of Interprofessional Research at the UK Center of Excellence in Rural Health

Principal Michelle Ritchie, Perry County Central High School

Teachers Devina Baker, Crystal Hignite and April Napier, Perry County Central High School Betsy Clemens, Hazard Chamber of Commerce

Wanda Brown, Perry County Fiscal Court

Lily Bakun

Kayce Campbell

Carter Castle

Contessa Combs

How devoted are Becky and Paul Hitchcock to their youngest child, Sarah, who because of a troubled birth and a disease in infancy has intellectual and developmental delays? Consider the following.

Sarah is 30, has lived at home with her parents her whole life but craved independence.

So Paul, who is the General Manager of the Morehead State University Public Radio station and a member of the CCDD Council, and Becky, a nurse, took drastic action.

In 2020, they sold their four-bed room, 2,400 square-foot home in Morehead and bought a double wide and placed it in rural Rowan County on 19 acres that is part of a farm owned by Becky’s family.

The Hitchcocks could downsize because their two sons and niece had long since left the nest and started their own families. The Hitchcocks have four grandchildren.

Paul and Becky purchased a small out building for the property and paid

ADU s Work

Accessory Dwelling Units

Allow Adults With Disabilities To Live INDEPENDENTLY

By John Lynch

contractor Shane Dicker son to transform it into a home for Sarah. And, the Hitchcocks agree, he did a spectacular job.

A mere 15 steps from the double wide, Sarah’s house is 640 square feet and includes a covered porch.

Inside is an open floor plan with a full bathroom and a combined living room and kitchen space, which has everything –sink, refrigerator, microwave, crock pot and griddle – except an oven and a stove.

Sarah also has two TVs, one in the liv ing room and one in her bedroom, and she has decorated the house to her taste.

“She likes her style, and things that are in her house are hers,” Paul said. “She picked out the paint, and the house has a seaside beach theme. This is her place.”

Sarah has a place to call home, and to those who advocate for accessible, affordable housing for the elderly and people with disabilities, Sarah’s home is also called an Accessory Dwelling Unit – ADU for short.

Accessible, affordable housing has always been at a premi um but never more so than in the current real estate crunch.

Housing prices and rents everywhere in the U.S. have soared, affecting new home buyers and renters but especially those with disabilities who need af fordability and accessibility.

This is especially true in Kentucky’s

two biggest cities – Louisville and Lex ington.

In Louisville, the waiting list for Sec tion 8 subsidized housing vouchers is now five to seven years, according to Lauren Mountz, Housing Program Manager at the Center for Accessible Living in Louisville.

She also points out that homelessness in Louisville is up 41% this year, and Louisville’s shortage of affordable hous ing units has ballooned to 31,000.

The need for people with disabilities seeking shelter and social services has skyrocketed 400%.

“ADUs are an ideal solution to this housing crunch because they create housing and don’t cost the city any thing. They can do nothing but help,” Mountz said.

“I can’t see any argument against it. Why would anyone be against anything that would create living space?”

That’s what Christina Espinosa thought too. Espinosa, a division direc tor at the University of Kentucky’s Hu man Development Institute, has worked for the past 15 years to promote univer sal design and housing accessibility.

She’s also a member of Lexington’s Mayor’s Commission for People with Disabilities.

But it wasn’t until last year that Lexington permitted ADUs, at about the same time that Louisville passed a similar change to its housing codes. Previously, ADUs were banned.

In Louisville, homeowners can build a separate residence, albeit with strict restrictions on size and location on the property. They can also convert a garage, detached or otherwise, into an

Hitchcock family in front

Sarah’s

house

Morehead

Morehead State University photo by Tim Holbrook

Marie Allison Pioneered ADUs in Lexington

No discussion about ADUs would be complete without the story of Marie Allison and her son, Christopher, 47. Because of a lack of oxygen during birth, Christopher suf fered brain damage.

As a child, he endured seizures every 15 minutes. He is nonver bal, has mild cerebral palsy, mild vision and hearing loss, and has autism and learning disabilities.

He has a Supports for Community Living Waiver that gives him 16 hours of care a day. He stays busy with music therapy, Special Olympics, massage therapy and movie day with friends. He also delivers Meals on Wheels once a week and developed Chris’s Ca nine Cookies, his own business where he bakes and sells cookies at McLeod’s Coffee House and Woodstock Spay and Neuter Clinic.

Christopher lives in the upstairs of the Lexington home where he was raised because 27 years ago when he was 20, Marie Allison, a retired attorney, battled the Lexington planning board, which eventually approved her plan to expand the upstairs and make an apartment for Christopher.

This was an ADU long before ADUs were approved last year, so Marie Allison is a pioneer, the first person in Lexington, as far as anyone knows, to create an ADU for an adult child with a disability.

Christopher’s living space includes a great room with a large TV, a dining table and a kitchen, two bedrooms, a bathroom and a builtin washer-dryer.

“Chris knows that this is his area. I’m downstairs and he’s up stairs,” Marie said.

ADU and remodel an existing home to create a separate living space.

In Lexington, only remodeling and garage conversions are allowed and may be banned in some neighborhoods because of deed restrictions.

A new detached garage can be built but only converted into an ADU one year after completion. Separate build ings are forbidden.

Even getting those accommodations in Lexington was a long struggle, facing resistance from home builders and neighborhood associations.

Espinosa and others will continue to advocate for ADUs because, she said, “ADUs are an incredibly exciting possi bility as a long-term solution for people with disabilities to increase their inde

She is grateful that Lexington finally approved ADUs. “I’m proud of Lexington for mak ing this a more livable city,” she said. “This is progress so that my friends can remodel their houses so their adult children can lead more independent lives.”

Ironically, Marie faces one more hurdle with the city. Although the new ordinance allows homeowners to rent out their homes as long as one family member lives there, the city forbids Marie to do so because of the deal that was struck in 1996 to allow her ADU.

She is optimistic that the city will rectify that situation so that her other son, Allen, 43, can rent out the downstairs for income to sup port Christopher after Marie’s passing. She is 77. n

pendence and help them live their most full life to which they are entitled.”

Joining HDI as an advocate is Maegan Pirtle, Housing Solutions Project Man ager at Mattingly Edge in Louisville.

Mattingly Edge supports people with disabilities to thrive at work, home and in relationships, and advocates for ADUs in Louisville.

Mattingly Edge received a grant from the CCDD to work on housing.

“We’ve seen ADUs work and provide so much benefit to people with disabili ties, and we’re interested in learning more,” Pirtle said.

That’s why Pirtle and a few of her colleagues traveled to Portland, Oregon this summer to study that city’s success with ADUs.

Meanwhile, Mattingly Edge has cre ated Inclusive Housing Solutions, a separate non-profit spinoff devoted to increasing availability to accessible, af fordable housing. ADUs are an impor tant part of that effort.

“The reality is that the housing needs of people with disabilities are not priori tized in the current system,” Pirtle said, “and they won’t be a priority until there is an organization devoted to making them a priority.”

In Rowan County, the Hitch cocks can’t say enough about the benefits of their ADU. It affords Sarah the independence she desires while keeping the family close.

Marie Allison with her son Chris in his ADU space in their house

Micah Peace

Building Bridges With An Interdisciplinary Advocate

By John Lynch

You’d have to search pretty far before you’d find someone who expresses as many intriguing, thought-provoking ideas as Micah Peace, a 28-year-old member of the CCDD Council.

For instance, Micah, who has been diag nosed with autism, calls Applied Behavior Analysis, conversion therapy by another name.

“It’s targeted toward eliminating un wanted behavior in people with autism,” Micah said. “But these might be the very behaviors that people with autism need to make our bodies feel OK.

“These behaviors are only ‘unwanted’ because they are seen as disruptive or weird, and the people around us might not understand the purpose they’re actu ally serving for us.

“This therapy can really take agency away from people like us.”

Then there is gender. Micah, who is married to Manny Urquilla, identifies as non-binary and goes by the pronoun they.

That alone is not uncommon, but listen to what Micah says about gender.

“I was raised as a girl but people with autism often fall out of gender norms because gender is a social construct,” Micah said.

Like many who have lived on the mar gins of their communities, Micah sees the world with a fresh perspective.

Maybe that’s why as a college student at Northern Kentucky University, Micah created their own major out of four mi nors: psychology, social justice, organiza tional leadership, and women and gender studies.

It took Micah six years to complete a four-year degree in part because of a “disability avalanche” that struck halfway

through college.

A case of mononucleosis in the summer of 2014 lingered and triggered Micah’s dysautonomia, a disorder of the autonomic nervous system, which controls bodily functions not consciously directed such as breathing, the heartbeat and digestive processes.

Micah would later receive the diagnosis of Ehlers-Danlos Syndrome, a connective tissue disorder that was the cause of their frequent joint issues, pain, and likely their dysautonomia as well.

“I was living alone at NKU in a third floor walk-up apartment and I had suffered frequent hip dislo cations. Then I fainted,” Micah said.

“It just became an untenable situa tion, and although I tried to advocate for supports that would allow me to stay, I needed to leave campus to focus on my health.”

Micah had to learn to walk again and finished their degree online at home but felt isolated in the process.

While living at home in Louisville, Micah connected with two organizations: the National Council on Independent Living and the Autistic Self-Advocacy Network.

Growing up, Micah had been diagnosed with bipolar disorder, psychotic depres sion, anxiety, OCD and psychosis with sensory issues. “I always felt like a bug under a microscope,” Micah said.

Finally, as an adult, Micah received an autism diagnosis.

In the summer of 2016, Micah attended an Autistic Self-Advocacy Network event in Washington, D.C. that trained college

students to be disability advocates.

“That blew my mind,” Micah said. “To be around other people with autism, it felt like I was coming home to myself. I finally got to meet other people who spoke my heart language and looked at the world like I do.”

Later that summer in D.C., Micah attended a National Council on Indepen dent Living conference where Micah met Donna Fox of the Center for Accessible Living (CAL).

That led to Micah’s first job in the dis ability community, working with the YES! Group at Louisville’s CAL.

Micah has also worked as an elementary school teacher and as a Disability Access Coordinator for Showing Up for Racial Justice, an anti-racism organization in Louisville.

While at CAL, Micah learned about the CCDD’s Kentucky Partners in Policymak ing program. Micah was a graduate of the inaugural program in 2019 and later was asked to apply to join the CCDD Council.

CCDD Council’s Micah Peace with husband Manny Urquilla

“When I was accepted, I was really excited,” Micah said. “I had a wonderful experience in KPIP, so this was a perfect opportunity to apply the things that I learned at KPIP.”

The summer of 2016 was a defin ing time for Micah. Through participation in the Autistic Self-Advocacy Network event, Micah got connected with the National Center for START Services centered at the Institute on Disability at the University of New Hampshire.

Micah was recruited as a researcher and since has co-authored a published paper (“Improving Research and Practice: Priorities for Young Adults with Intel lectual/Developmental Disabilities and Mental Health Needs.”)

They worked part-time with the National Center (many employees work remotely) and this summer was elevated to adjunct staff member and now works up to 30 hours a week, doing research and helping to create trainings that reflect self-advocates’ perspectives and experiences.

Micah has big dreams of being part of a team to develop a START Program to serve people with disabilities and mental health needs in Kentucky.

START stands for Systemic, Therapeu tic, Assessment, Resources, and Treat ment and was developed in 1988 by Dr. Joan B. Beasley and her team at the University of New Hampshire.

START provides community-based crisis intervention for individuals with intellectual and developmental disabili ties and mental health needs.

The goal is to strengthen efficiencies and service outcomes to provide support and help prevent future crises.

Andrea Caoili is the Director of Re search and Quality Assurance and works out of North Carolina. She is Micah’s immediate supervisor.

Micah has worked on the “Reconcil ing the Past and Changing the Future” project and is part of a leadership team that has designed trainings and forums for young adults with intellectual dis abilities.

They are also researching a project evaluating telehealth services for people with disabilities.

“I recently began directly supervising Micah and have come to know Micah on a different level,” Caoili said.

“I am often in awe of their ability to clearly articulate ideas and share experi ences with others in a way that is so meaningful.

“After listening, there is no way that you cannot act in a way that is inclusive.”

Recently, Micah was involved in train ing for medical students where Micah explained that medical providers needed to recognize their own constellation of biases that they bring to the treatment relationship.

“It gave me chills,” Caoili said.

Feedback from medical students

showed that Micah’s presentation was the most meaningful of the training, pointing to the importance of self-advo cate’s voices, their own stories of their lived experiences of disability and the services they have received.

In August, Caoili arrived late to a meet ing on telehealth research and Micah had taken over leadership duties.

“Micah was just running this meeting in the most graceful and constructive way,” Caolili said.

“Micah was facilitating an important meeting without blinking an eye. I value what Micah brings to their work day in and day out.”

Caoili’s observations underscore what Manny, Micah’s husband, has experi enced for the past eight years.

He describes Micah as a complex per son who is incredibly smart and has a big heart.

Micah is hard-working and persistent, regardless of the obstacles faced. And Micah has a wonderful sense of humor.

“Micah is clever with words, very witty and although they enjoy being alone, Micah can be the life of the party when others are around,” said Manny, who works in IT for the YUM corporation.

“Micah always puts the other person first and is persistent about making relationships work,” Manny said.

“Being around Micah is like being around the captain of the team. They always know what to do and what is needed.” n

Sarah, who has a Michelle P. Waiver, participates in Community Learning Services twice a week to help her with daily living skills, and this summer she completed a week of volunteering at a local Vacation Bible School session.

She makes her own breakfast and lunch (the family eats dinner together), and she does her own housework.

She particularly enjoys having sleepovers with her nephew and two nieces. She makes popcorn to enjoy while watching movies together. Monday through Thursday, Sarah stays

by herself at her house except for dinner with her folks. She then joins Mom and Dad for the weekend.

“This has turned out well,” Becky said. “Not once has she said she doesn’t like it at her house.”

Said Sarah: “I have more freedom.”

Because mother and daughter keep house differently, they both have ben efitted.

“Sarah likes to collect things and have a lot of stuff in her house, and I prefer a tidy house,” Becky said.

“This gives her the choice to live the way

she wants. Everybody needs their own space, and not everyone wants to live the same. This has helped both of us.”

For Paul, he has seen his daughter ma ture and develop as a young woman.

“She makes decisions for her individual life and that has helped her to be more independent,” he said. “She has grown as a person so much because of her independence.

“With ADUs, there isn’t a cookie cutter approach, but this option worked for us. We want to tell this story so other people can make it work for them.” n

Resource

GENERAL

Commonwealth Council on Developmental Disabilities

1024 Capital Center Dr., Frankfort, Ky., 40601 (502) 564-7841

The mission of the CCDD is to create systemic change in Kentucky that empowers individuals to achieve full citizenship and inclusion in the community through education, capacity building and advocacy.

CCDD is a dynamic mix of people with unique backgrounds and experiences. Members include 16 governor-appointed individuals with disabilities and family members of individuals with disabilities, as well as representatives from major state agencies that serve people with developmental disabilities. https://ccdd.ky.gov

The Arc of the United States 1825 K Street, NW, Suite 1200, Washington, DC, 20006 (800) 433-5255 / 202-534-3700 / info@ thearc.org

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes. www.thearc.org

The Arc of Kentucky

706 East Main St., Suite A, Frankfort, Ky., 40601 (502) 875-5225 / (800) 281-1272

arcofky@arcofky.org

The Arc of Kentucky is the largest statewide community-based volunteer organization advocating for and with people with intellectual and developmental disabilities (I/DD) and their families. The Arc works tirelessly to uphold the vision that every individual and family living with I/DD in Kentucky has access to the information, advocacy and skills they need to support their full inclusion and participation in the community throughout their lifetimes. / www.arcofky.org

The Arc of Kentucky Chapters Ashland: Toni Mullins / (606) 694-1797 toni@guidedlivingllc.com

Barren County: Allison Curasi / thebcarc@gmail.com

Central Kentucky: Alva M. Covington / (312) 502-8217

Floyd County/Prestonsburg: Deborah Hall (606) 268-0808

Hardin County: Clara Harrison / (270) 300-6659

Lake Cumberland, Somerset: TBA Logan County: Thomas Thompson / (270) 726-2218

Louisville Area: Serena Jacobs / (502) 939-8273

Meade County: Mary Greenwell / (270) 980-0150

Northern Kentucky The Point: Judi Gerding (859) 491-9191

The Arc of Kentucky Self Empowerment Network: Selfempowerment@arcofky.org

Self Empowerment Network of Lake Cumberland: Donna Littrell / (606) 875-9847

Self Empowerment Network Different Abilities

South Central Kentucky: Renee Hathaway (270) 432-5938

Self Empowerment Network The Arc of Ashland: Toni Mullins / (606) 694-1797

Self Empowerment Network The Arc of Greater Louisville Area: Dale Arnett / (606) 224-0240

Best Buddies Kentucky

3044 Bardstown Road, Suite 1274, Louisville, Ky., 40205 / (502) 536-7876

Best Buddies Kentucky, founded in 2009, is dedicated to establishing a volunteer movement that creates opportunities for one-to-one friendships, integrated employment, leadership development, and inclusive living for individuals with intellectual and developmental disabilities. / www.bestbuddies.org/kentucky

Best Point (Formerly Children’s Home of Cincinnati) 5050 Madison Road, Cincinnati, Ohio, 45227 (513) 272-2800 / (513) 808-9632

Best Point is a private, non-profit social service agency that improves the lives of children and their families through services in four areas: adoption, early childhood, education and mental health. Best Point serves children of all ages and their families, including adoptive children, new parents needing support and guidance, children with special education needs, and children with mental health diagnoses. / www.tchcincy.org

Big Brothers Big Sisters Organizations

For more than 100 years, Big Brothers Big Sisters has operated under the belief that inherent in every child is the ability to succeed and thrive in life. As the

nation’s largest donor and volunteer-supported mentoring network, Big Brothers Big Sisters makes meaningful, monitored matches between adult volunteers (“Bigs”) and children (“Littles”), ages 6 through 18, in communities across the country. BBBS develops positive relationships that have a direct and lasting effect on the lives of young people

Bluegrass

181 Lowry Lane, Suite 150, Lexington Ky., 40503 (859) 231-8181 / www.bbbs-bluegrass.org

Greater Cincinnati

2400 Reading Road, Suite 148, Cincinnati, Ohio, 45202 (513) 421-4120 / www.bigsforkids.org

Kentuckiana

1519 Gardiner Lane, Louisville, Ky., 40218 (877) 588-2300 / (502) 587-0494 / www.bbbsky.org

Tristate

1505 Carter Ave., Suite 301, Ashland, Ky., 41105 (606) 329-8799 / www.bbbstristate.org

Impact Mentoring

1 South Main Street, Madisonville, Ky., 42431 (270) 821-0688

Committed to building strong, trusting and caring relationships that will have a positive impact and change the lives of those children who need it most through mentoring with an adult volunteer. www.Madisonvillebbbs.org

Bluegrass Care Navigators

1733 Harrodsburg Road, Lexington, Ky., 40504 (855) 492-0812

Bluegrass Care Navigators (formerly Hospice of the Bluegrass) provides physical, emotional and spiritual care for adult and pediatric patients with life-limiting illness, and their families, at home, in nursing facilities and at Hospice Care Centers. Support and bereavement services extend to family members and anyone in the community experiencing grief. Bluegrass Care Navigators provides care in 32 central, northern and southeastern Kentucky counties. / www.bgcarenav.org

Brighton Center Inc.

741 Central Ave., Newport, Ky., 41071 (859) 491-8303

Brighton Center wraps a community of support around individuals and families by tackling the issues that prevent people from becoming self-sufficient, removing the barriers they face, and creating hope so that goals can be achieved and dreams realized. From modest beginnings in 1966, the Center has grown to provide a wide range of programs and services that include meeting basic needs, adult and early childhood education, workforce development, substance abuse recovery for women, affordable housing, financial education and counseling, youth services, and neighborhood based programs. www.brightoncenter.com

Build Inclusion, Inc.

P.O. Box 23030, Lexington, Ky., 40523 (859) 221-6689

Build Inclusion promotes intentional inclusion, access, and opportunities through community & family education, engagement, and most of all, meaningful, competitive

employment. Build Inclusion facilitates success for individuals in transition to adulthood in preparing for and fully participating in this next stage of their lives. Clinical social work services are also available for the ID/DD population. / www.buildinclusion.org

Centers for Accessible Living

The Center for Accessible Living is an innovative leader in empowering all people to achieve their goal of independent living while involving the entire community.

Louisville Location

501 S. Second St., Suite 200, Louisville, Ky., 40202 (502) 589-6620 / Toll Free (888) 813-8497 webinfo@calky.org / www.calky.org

Murray Location

1051 N. 16th St., Suite C, Murray, Ky., 42071 (270) 753-7676 / Toll Free (888) 261-6194 calmur@calky.org / www.calky.org

Bowling Green Location

1830 Destiny Lane, Suite 108, Bowling Green, Ky. 42104 (270) 599-0911 / www.calky.org

Christian Appalachian Project

485 Ponderosa Drive, P.O. Box 1768, Paintsville, Ky., 41240 / (866) 270-4227

CAP is a Kentucky-based, non-profit Christian organization committed to serving people in need in Appalachia by providing physical, spiritual and emotional support through a wide variety of programs and services. www.christianapp.org

Community Action Kentucky

101 Burch Court, Frankfort, Ky., 40601 (800) 456-3452 / (502) 875-5863

Community Action Kentucky (CAK) is a statewide association representing and assisting the 23 community action agencies as they work to empower individuals and families to attain greater economic success. www.capky.org

Easter Seals

Cardinal Hill

2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7217 / www.cardinalhill.org

Western Kentucky

2229 Mildred St., Paducah, Ky., 42001 (270) 443-1200 / www.eswky.easterseals.com

Home of the Innocents

1100 E. Market St., Louisville, Ky., 40206 (502) 596-1000 / info@homeoftheinnocents.org

Home of the Innocents is the region’s open arms to kids in crisis, providing therapeutic, loving care to children who are victims of abuse, abandonment and neglect. It’s also home to children who have autism and other behavioral health diagnoses; who are medically fragile; and families with exceptional needs. Open Arms Children’s Health is the Home’s health care facility offering pediatric medical, dental, hearing, vision and pharmacy. www.homeoftheinnocents.org

Human Development Institute (HDI) Kentucky’s University Center on Disability

University of Kentucky

113 Mineral Industries Building, Lexington, Ky., 405060051 / (859) 257-4356

HDI’s mission is to advance efforts that build inclusive communities, address inequities, and improve the lives of all people who experience disability across the lifespan. HDI achieves its mission through leadership and community partnerships across Kentucky and the nation. Learn more at www.hdi.uky.edu

Independence Place, Inc.

2358 Nicholasville Road, Suite 180, Lexington, Ky., 40503 (859) 266-2807

Independence Place is a non-profit, consumer-driven, non-residential Center for Independent Living, serving people with disabilities of all ages. The mission is to help people with disabilities achieve their potential for community inclusion by improving access and equal opportunity. / www.ipky.org

Independence Seekers Project

1244, East Third St., Suite 200, Louisville, Ky., 40203 (502) 509-9363

As a leader in disability advocacy, the Independence Seekers Project aims to challenge ableism and redefine community through a support network built by those with disabilities. Alongside peers and allies, ISP aspires to create a more inclusive community dedicated to interdependence. www.independenceseekersproject.org

KARRN (Kentucky Appalachian Rural Rehabilitation Network)

UK College of Health Sciences, 900 South Limestone, Lexington, Ky., 40536 (859) 323-1100/ phkitz1@uky.edu

A collaborative team composed of individuals impacted by neurological conditions, providers who serve them, members of communities in which they live, advocates, educators and researchers who investigate these conditions. / www.karrn.org

Kentucky Association of Sexual Assault Programs 83-C Michael Davenport Blvd., Frankfort, Ky., 40601 (502) 226-2704 / erecktenwald@kasap.org

KASAP’s mission is to speak with a unified voice against sexual victimization. KASAP is funded in whole or in part with public funds. / www.kasap.org

Kentucky Partnership for Families and Children, Inc. 600 Teton Trail, Frankfort, Ky., 40601 (502) 875-1320 / (800) 369-0533 Melissa@kypartnership.org

KPFC’s vision is that all families raising youth and children affected by behavioral health challenges will achieve their fullest potential. KPFC’s mission is to empower families affected by behavioral health challenges to initiate personal and systems change. www.kypartnership.org

Kentucky Special Parent Involvement Network, Inc. (KY-Spin) 10301-B Deering Road, Louisville, Ky., 40272

(502) 937-6894 / (800) 525-7746

The mission is to link families and individuals with disabilities to valuable resources that will enable them to live productive, fulfilling lives. A project of KY-SPIN, Inc., is the KY-SPIN Parent Center PTI (Parent Training & Information Project), which is funded by the U.S. Dept. of Education. KY-SPIN Parent Center provides training, information and support for children and youth with all types of disabilities (birth through 26 years old), their parents, families and professionals. www.kyspin.com

Kentucky Youth Advocates

10200 Linn Station, Suite 310, Louisville, Ky., 40223 (502) 895-8167 / (888) 825-5592

KYA advocates for policies that give children the best possible opportunities for a brighter future and are making Kentucky the best place in America to be young. www.kyyouth.org

Prevent Child Abuse Kentucky

801 Corporate Drive, Suite 120, Lexington, Ky., 40503 (859) 225-8879 / 1-800-CHILDREN pcaky@pcaky.org

The mission of PCAK is to prevent the abuse and neglect of Kentucky’s children through advocacy, education, awareness and training. PCAK is helping to build a better Kentucky by shaping future leaders and their families to ensure Kentucky’s children grow up in safe, healthy environments. Being a parent can be tough. For FREE, confidential information and support, call the helpline at 1-800-CHILDREN. www.pcaky.org

Public Library Home Delivery Service

Many of the state’s county public libraries offer home delivery service for those with physical limitations that prevent them from visiting. Below are libraries in the state’s most populous areas. Contact the public library in your county to inquire about services.

Boone County (Florence): (859) 342-2665 ext. 8108 www.bcpl.org/docs/library/we-deliver.pdf

Campbell County (Newport): (859) 572-5035 ext. 352 www.cc-pl.org/services/adult-outreach-services

Kenton County (Covington): (859) 962-4062 www.kentonlibrary.org/outreach/homebound

Laurel County Public Library (London): (606) 864-5759 www.Laurellibrary.org/services/outreach-services/ Lexington: (859) 231-5500 www.lexpublib.org/outreach Louisville: (502) 574-1611 www.lfpl.org/bookstoyou.html

Warren County (Bowling Green): (270) 535-4886 https://warrenpl.org/using-the-library/ Daviess County (Owensboro): (270) 691-1886 www.dcplibrary.org/books-to-you

Paul Sawyier (Frankfort) / (502) 352-2665 www.pspl.org/outreach-services

Hardin County (Elizabethtown): (270) 769-6337 www.hcpl.info/services.asp

Safe Kids Worldwide

1 Inventa Place, Sixth Floor West, Silver Spring, Md.,

20910 / (202) 662-0600

Safe Kids is a program that brings together health and safety experts, educators, corporations, foundations, governments and volunteers to educate and protect families. Safe Kids is a global network of organizations dedicated to preventing accidental injury. Efforts are needed because as many as 90% of accidental injuries can be prevented. / www.safekids.org

Fayette County Coalition

Kentucky Children’s Hospital, 800 Rose St., Lexington, Ky., 40536 / (859) 323-1153 www.safekids.org/coalition/safe-kids-fayette-county-ky

Kentucky Coalition

Kentucky Department of Health, 275 E. Main St., HS2W-A, Suite 242, Frankfort, Ky., 40621 (502) 564-2154 ext 4459 www.safekids.org/coalition/safe-kids-kentucky

Louisville and Jefferson County Coalition

Norton Children’s Hospital, 315 E. Broadway, Louisville, Ky., 40202 / (502) 629-7244 www.safekids.org/coalition/safe-kids-louisville

TASH Disability Advocacy Worldwide

1101 15th Street NW, Suite 206, Washington D.C., 20005 / (202) 817-3264

An international association of people with disabilities, family members, other advocates and professionals working for a society in which inclusion of all people in all aspects of society is the norm. www.tash.org

Kentucky Chapter Located in Louisville

Darrell Mattingly / (859) 373-8920 darrell.mattingly@uky.edu www.tash.org/chapters/kentucky-tash/

Tourette Association of America

42-40 Bell Boulevard, Suite 507, Bayside, NY., 11361 888-4-TOURET / support@tourette.org

Tourette Association of America (formerly Tourette Syndrome Association) is the only national organization serving the community, and works to raise awareness, advance research, and provide ongoing support to patients and families impacted by Tourette Syndrome and Tic Disorders. The TAA directs a network of 31 Chapters, 83 support groups and recognizes 18 Centers of Excellence across the country. www.tsa-usa.org

Tourette Syndrome in the Bluegrass

Angela King, 346 Northridge Drive, Midway, 40347 (270) 317-3046

United Way Bluegrass

651 Perimeter Dr., Suite 510, Lexington, Ky., 40517 211 Information Line / (859) 233-4460 LiveUnited@uwbg.org / www.uwbg.org

Kentucky

P.O. Box 4653, Louisville, Ky., 40204 (502) 589-6897 / 211 Help Line / www.uwky.org

Metro

334 E. Broadway, P.O. Box 4488, Louisville, Ky., 40204 (502) 583-2821 / 211 Help Line

Fights for the education, health, housing and financial stability of every person. / www.metrounitedway.org

WHAS Crusade for Children

520 West Chestnut St., Louisville, Ky., 40202 (502) 582-7706

The WHAS Crusade for Children, established in 1954, raises money for agencies, schools and hospitals to better the lives of children with special needs. The Crusade Advisory Panel, an independent board of interdenominational ministers, decides how donations are distributed each year. www.whascrusade.org

STATE RESOURCES

Brain Injury

Acquired Brain Injury (ABI) Waiver

275 E. Main St. 6W-B, Frankfort, Ky., 40621 (502) 564-5198 / (866) 878-2626

This program is designed to provide intensive services and support to adults with acquired brain injuries as they work to re-enter community life. https://chfs.ky.gov/agencies/dms/dca/Pages/abi.aspx/

Traumatic Brain Injury (TBI) Trust Fund

275 E. Main St., 3E-E, Frankfort, Ky., 40601 (502) 564-6930 / toniaawells@ky.gov

This program offers flexible funding and support for people with traumatic brain injuries. The fund supports supplemental, community-based efforts to meet the special needs of individuals with brain injury. chfs.ky.gov/agencies/dail/Pages/tbitrust.aspx

Brain Injury Alliance of Kentucky

7321 N. La Grange Road, Suite 100, Louisville, Ky., 40222 / (800) 592-1117

Serves those affected by brain injury through advocacy, education, prevention, service and support. www.biak.us

Cabinet for Health and Family Services Office for Children with Special Health Care Needs

The mission of the OCSHCN is to enhance the quality of life for Kentucky’s children with special health care needs through quality service, leadership, advocacy, education and collaboration. The OCSHCN’s vision is to be the visible leader in supporting the highest quality of life for Kentucky’s children with special health care needs and their families through collaboration and creation of a more accessible community based system of support. chfs.ky.gov/agencies/ccshcn/Pages/about.aspx

Regional Offices:

Central office / Louisville

310 Whittington Parkway, Suite 200, Louisville, Ky., 40222 (502) 429-4430 / (800) 232-1160

Serving Bullitt, Carroll, Gallatin, Henry, Jefferson, Oldham, Owen, Shelby, Spencer, Trimble counties and statewide.

Barbourville

110 Johnson Lane, Barbourville, Ky., 40906 (606) 546-5109 / (800) 348-4279

Serving Bell, Clay, Harlan, Jackson, Laurel, Rockcastle, Knox and Whitley counties. Bowling Green

2040 Louisville Road, Bowling Green, Ky., 42101 (270) 746-7816 / (800) 843-5877

Serving Allen, Barren, Butler, Christian, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Todd and Warren counties.

Elizabethtown

580-B Westport Road, Elizabethtown, Ky., 42701 (270) 766-5370 / (800) 995-6982

Serving Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson and Washington counties.

Hazard

103 Town and Country Lane, Suite M, Hazard, Ky., 41701 (606) 435-6167 / (800) 378-3357

Serving Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry and Wolfe counties.

Lexington

333 Waller Ave., Suite 300, Lexington, Ky., 40504 (859) 252-3170 / (800) 817-3874

Serving Anderson, Bourbon, Boone, Boyle, Clark, Estill, Fayette, Franklin, Garrard, Grant, Harrison, Jessamine, Kenton, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, and Woodford counties.

Morehead

214 W. First St., Morehead, Ky., 40351 (606) 783-8610 / (800) 928-3049

Serving Bath, Boyd, Bracken, Campbell, Carter, Elliot, Fleming, Floyd, Greenup, Lawrence, Lewis, Magoffin, Mason, Menifee, Morgan, Montgomery, Pendleton, Robertson and Rowan counties.

Owensboro

1600 Breckenridge St., Suite 1200, Owensboro, Ky., 42303 / (270) 687-7038 / (877) 687-7038

Serving Daviess, Hancock, Henderson, Hopkins, McLean, Muhlenberg, Ohio, Union and Webster counties.

Paducah

The HIPP Building, 2855 Jackson St., Paducah, Ky., 42003 / (270) 443-3651 / (800) 443-3651

Serving Ballard, Caldwell, Calloway, Carlisle, Crittenden, Fulton, Graves, Hickman, Livingston, Lyon, Marshall, McCracken and Trigg counties.

Prestonsburg

5000 Ky. Route 321, Prestonsburg, Ky., 41653 (606) 889-1761 / (800) 594-7058

Serving Floyd, Johnson, Magoffin, Martin and Pike counties.

Somerset

Professional Plaza, 401 Bogle St., Suite 104, Somerset, Ky., 42503 (606) 677-4120 / (800) 525-4279

Serving Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor and Wayne counties.

Family to Family Health Information Centers

Located at the offices of the Commission for Children with Special Health Care Needs, Family to Family HICs are family-run centers that assist families of children and youth with special health care needs and the professionals who serve them. The goal is to help keep children healthy by promoting regular medical care. F2F HICs help families make more informed choices by providing support,

information, resources and training. F2F HICs promote access to community-based, self-directed services that are available to children with special needs.

Sondra Gilbert / 310 Whittington Parkway, Suite 200, Louisville, Ky., 40222 / (502) 782-8781 https://chfs.ky.gov/agencies/ccshcn/Pages/ftf.aspx

Hart-Supported Living Program

275 E. Main St., 3E-E, Frankfort, Ky., 40601 (502) 564-6930 / pcap.hsl@ky.gov

TThe Hart-Supported Living program provides funds for supports to help Kentuckians with disabilities live in their homes and communities and avoid institutionalization. Any Kentuckian with a disability as defined by the Americans with Disability Act can apply for Hart-Supported Living funds.

Coordinators

Region 1: Rachel Phelan

P.O. Box 548, Bardwell, Ky., 42023 (502) 229-9110 / rachel.phelan@ky.gov

Counties: Ballard, Caldwell, Calloway, Carlisle, Christian, Crittenden, Fulton, Graves, Henderson, Hickman, Hopkins, Livingston, Lyon, Marshall, McCracken, McLean, Muhlenberg, Todd, Trigg, Union and Webster.

Region 2: Makalla Morrison

P.O. Box 2010, Bowling Green, Ky., 42102 (502) 229-5211 / makalla.morrison@ky.gov

Counties: Adair, Allen, Barren, Breckinridge, Butler, Cumberland, Daviess, Edmonson, Grayson, Green,

Hancock, Hardin, Hart, Larue, Logan, Meade, Metcalf, Monroe, Nelson, Ohio, Simpson, Taylor and Warren.

Region 3: Natalie Rawlings

P.O. Box 206037, Louisville, Ky., 40220 (502) 229-6500 / natalie.rawlings@ky.gov

Counties: Bullitt, Jefferson and Spencer.

Region 4: : Rachel Phelan

P.O. Box 548, Bardwell, Ky., 42023 (502) 229-9110 / rachel.phelan@ky.gov

Counties: Anderson, Bourbon, Clark, Estill, Fayette, Harrison, Jessamine, Madison, Marion, Mercer, Montgomery, Powell, Scott, Washington and Woodford.

Region 5: Amanda Coulter

P.O. Box 876, Lawrenceburg, Ky., 40342 (502) 229-2294 / AmandaM.Coulter@ky.gov

Counties: Bell, Boyle, Casey, Clay, Clinton, Garrard, Harlan, Jackson, Knox, Laurel, Lee, Leslie, Lincoln, McCreary, Owsley, Pulaski, Rockcastle, Russell, Wayne and Whitley.

Region 6: Caryn Turvey

P.O. Box 1385, Ashland, Ky., 41105 (502) 229-6863 / caryn.turvey@ky.gov

Counties: Bath, Boyd, Bracken, Breathitt, Carter, Elliott, Fleming, Floyd, Greenup, Johnson, Knott, Lawrence, Letcher, Lewis, Magoffin, Martin, Mason, Menifee, Morgan, Nicholas, Perry, Pike, Robertson, Rowan and Wolfe.

Region 7: : Rachel Phelan

P.O. Box 548, Bardwell, Ky., 42023 (502) 229-9110 / rachel.phelan@ky.gov

Counties: Boone, Campbell, Carroll, Franklin, Gallatin, Grant, Henry, Kenton, Oldham, Owen, Pendleton, Shelby and Trimble. chfs.ky.gov/agencies/dail/Pages/hslp.aspx

Home and Community-Based Waiver (HCB)

275 E. Main St., 6W-B, Frankfort, Ky., 40621 (502) 564-5560 / dmsweb@ky.gov

The Home and Community Based (HCB) waiver is part of Kentucky’s 1915(c) HCBS Medicaid waiver program.

HCB provides assistance to the elderly or to adults and children with physical disabilities to help them live in the community as independently as possible. https://chfs.ky.gov/agencies/dms/dca/Pages/hcb-waiver. aspx

Kentucky Assistive Technology Loan Corp. Mayo-Underwood Building 500 Mero St., 4th Floor NE, Frankfort Ky., 40601 (877) 675-0195

The Kentucky Assistive Technology Loan Corporation (KATLC) offers low interest loans for qualified applicants with disabilities for assistive technology. Notice May 2022: The Kentucky Assistive Technology Loan Corporation will be going through a reorganization. As a part of this process, KATLC will be looking for a new lending partner. The Board of Directors anticipate this being a six to nine month process. www.katlc.ky.gov

Kentucky Education & Workforce Development 500 Mero St., 4th floor, Frankfort, Ky., 40601 (502) 564-0372

Providing Kentuckians from all across the Commonwealth the opportunity of transformational change through education and quality training so they can attain a meaningful career, support their families, break the cycle of poverty and prosper. https://educationcabinet.ky.gov/Pages/default.aspx

Kentucky Children Insurance Program (K-CHIP)

(877) 524-4718 / TTY/TDD: (877) KCHIP-19 (877) 524-4719 Hispanic Interpreter: (800) 662-5397 K-CHIP’s mission is to provide free health insurance to low income, uninsured children in Kentucky. The K-CHIP staff understands that access to health care is important and that preventive care is a large part of health care. kidshealth.ky.gov/Pages/index.aspx

Are We Missing Resources?

Kentucky Coalition Against Domestic Violence

111 Darby Shire Circle, Frankfort, Ky., 40601 (502) 209-5382

In addition to providing a safe, secure environment for victims/survivors and their children, programs now also offer a variety of support services to residents and non-residents, including legal/court advocacy, case management, safety planning, support groups, individual counseling, housing assistance, job search and children’s groups. / www.kcadv.org

Kentucky Commission on the Deaf and Hard of Hearing

632 Versailles Road, Frankfort, Ky., 40601 (502) 573-2604 / Videophone: (502) 416-0607 kcdhh@ky.org / www.kcdhh.ky.gov

Kentucky Community Mental Health Centers

275 E. Main St., 6W-D, Frankfort, Ky., 40621 (502) 564-6890

Publicly-funded community services are provided for Kentuckians who have problems with mental health, developmental and intellectual disabilities, or substance abuse, through Kentucky’s 14 regional Boards for Mental Health or Individuals with an Intellectual Disability (Regional MHID Boards). Regional MHID Boards are private, nonprofit organizations established by KRS Chapter 210 (see Related Links) which serve residents of a designated multi-county region. chfs.ky.gov/agencies/dms/dpo/bpb/Pages/cmhc.aspx

Regional Offices:

Adanta MH / MR Board

130 Southern School Road, Somerset, Ky., 42501 (606) 679-4782

Serving Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor, Wayne counties. www.adanta.org

Communicare, Inc.

107 Cranes Roost Ct., Elizabethtown, Ky., 42701 (270) 765-2605

Serving Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson, Washington counties. www.communicare.org

Comprehend, Inc.

610 Elizaville Ave., Flemingsburg, Ky., 41041 / (606) 849-2212

Our goal at Exceptional Family Magazine is to provide a compre hensive, statewide list of resources for folks with disabilities. Since we first published this magazine in 2009, we have up dated and expanded our list of resources many times.

Help us continue to make this Resource Directory as accurate and thorough as possible. If you know of resources in the state or in your part of Kentucky that need to be included, please let us know. Thanks for your assistance and we look forward to hearing from you.

To add to this Resource Directory, simply contact Editor John Lynch by phone (859) 494-1140 or email at johnplynch1950@gmail.com. n

Serving Bracken, Fleming, Lewis, Mason, Robertson counties. www.comprehendinc.org

Cumberland River Behavioral Health

1203 American Greeting Card Road, Corbin, Ky., 40702 (606) 528-7010

Serving Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley counties.

www.crbhky.org

Four Rivers Behavioral Health 425 Broadway, Suite 201, Paducah, Ky., 42001 (270) 442-7121 / 24-hour Line (800) 592-3980

Serving Ballard, Calloway, Carlisle, Gallatin, Graves, Hickman, Livingston, McCracken,Marshall counties. www.4rbh.org

Ky. River Community Care

3830 Kentucky Highway 15-South, Jackson, Ky., 41339 (606) 666-7591

Serving Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry, Wolfe counties. / krccnet.com

Lifeskills

380 Suwanee Trail St., Bowling Green, Ky. 42103 (270) 901-5000

Serving Allen, Barren, Butler, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Warren counties. www.lifeskills.com

Mountain Comprehensive Care Center

104 S. Front Ave., Prestonsburg, Ky., 41653 (606) 886-8572

Serving Floyd, Johnson, Magoffin, Martin, Pike counties. www.mtcomp.org

New Vista

1351 Newtown Pike, Building 5, Lexington, Ky., 40511 (859) 253-1686 / (859) 272-7483 24-hour help line (800) 928-8000

Serving Anderson, Bourbon, Boyle, Clark, Estill, Fayette, Garrard, Harrison, Jessamine, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, Woodford counties. newvista.org

NorthKey Community Care

502 Farrell Drive, Covington, Ky., 41011 (859) 578-3200 / (877) 331-3292

Serving Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen, Pendleton counties. / www.northkey.org Pathways, Inc.

P.O. Box 790, 1212 Bath Ave., Ashland, Ky., 41101 (606) 329-8588

Serving Bath, Boyd, Carter, Elliott, Greenup, Lawrence, Menifee, Montgomery, Morgan, Rowan counties. www.pathways-ky.org

Pennyroyal MH / MR Board

3999 Fort Campbell Blvd., Hopkinsville, Ky., 42240 (270) 886-2205

Serving Caldwell, Christian, Crittenden, Hopkins, Lyon, Muhlenberg, Todd, Trigg counties. www.pennyroyalcenter.org

RiverValley Behavioral Health, Inc.

1100 Walnut St., Owensboro, Ky., 42302 (270) 689- 6500

Serving Davies, Hancock, Henderson, McLean, Ohio, Union, Webster counties. / www.rvbh.com

Seven Counties Services

10401 Linn Station Road, Suite 100, Louisville, Ky. 40223 / (502) 589-1100

Serving Bullitt, Henry, Jefferson, Oldham, Shelby, Spencer, Trimble counties. www.sevencounties.org

Kentucky Department for Behavioral Health, Developmental and Intellectual Disabilities

275 E. Main St., 4W-F, Frankfort, Ky., 40621 (502) 564-4527 / (502) 564-7700

The department oversees services in Kentucky to people with intellectual and other developmental disabilities, mental health and substance use disorders. https://chfs.ky.gov/agencies/dbhdid/Pages/default.aspx

Kentucky Early Intervention System

275 E. Main St., HS2WC, Frankfort, Ky., 40621 (502) 564-3756

Kentucky Early Intervention System is a statewide early intervention system that provides services to children with developmental disabilities from birth to age 3 and their families. Kentucky Early Intervention System is Kentucky’s response to the federal Infant-Toddler Program. Kentucky Early Intervention System offers comprehensive services through a variety of community agencies and service disciplines and is administered by the Department for Public Health in the Cabinet for Health and Family Services. https://chfs.ky.gov/agencies/dph/dmch/ecdb/Pages/keis. aspx

Regional Offices: https://chfs.ky.gov/agencies/dph/dmch/ecdb/fs/ POElistingforWebsite.pdf

Barren River District Point of Entry

P.O. Box 6499, 380 Suwannee Trail, Bowling Green, Ky., 42103 / (270) 901-5749 / (800) 643-6233

Counties served: Allen, Barren, Butler, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Warren

Big Sandy District Point of Entry 104 South Front Ave., Prestonsburg, Ky., 41653 (606) 886-4417 / (800) 230-6011

Counties served: Floyd, Johnson, Magoffin, Martin, Pike

Buffalo Trace District Point of Entry 420 East 2nd St., Maysville, Ky., 41056 (606) 564-3919 / (800) 335-4249

Counties served: Bracken, Fleming, Lewis, Mason, Robertson

Cumberland Valley District Point of Entry

175 East Peachtree St., Corbin, Ky., 40701 (606) 523-0229 / (800) 509-9559

Counties served: Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley.

FIVCO District Point of Entry 5850 U.S. 60, Box 11 Summit Plaza, Ashland, Ky., 41102 / (606) 929-9155 / (800) 650-1329

Counties served: Boyd, Carter, Elliott, Greenup, Lawrence

Gateway District Point of Entry

P.O. Box 290, Owingsville, Ky., 40360 (606) 674-3204 / (800) 942-4358

Counties served: Bath, Menifee, Montgomery, Morgan, Rowan

Green River District Point of Entry

1501 Breckenridge St., Owensboro, Ky., 42303 (270) 852-2905 / (888) 686-1414

Counties served: Daviess, Hancock, Henderson, McLean, Ohio, Union, Webster

Kentuckiana District Point of Entry

312 Whittington Parkway, Suite 020, Louisville, Ky., 40222 / (502) 429-1249 / (800) 422-0087

Counties served: Bullitt, Henry, Jefferson, Oldham, Shelby, Spencer, Trimble

Kentucky River District Point of Entry

115 Rockwood Lane, Hazard, Ky., 41701 (606) 439-1325 / (800) 328-1767

Counties served: Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry, Wolfe Lake Cumberland District Point of Entry 259 Parkers Mill Road, Somerset, Ky., 42501

(606) 678-2821 / (800) 378-2821

Counties served: Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor, Wayne Lincoln Trail District Point of Entry

2935 Dolphin Drive, Suite 204, Elizabethtown, Ky., 42701 / (270) 737-5921 / (800) 678-1879

Counties served: Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson, Washington New Vista District Point of Entry

1351 Newtown Pike, Building 5, Lexington, Ky., 40511 (859) 271-9448 / (800) 454-2764

Counties served: Anderson, Bourbon, Boyle, Clark, Estill, Fayette, Franklin, Garrard, Harrison, Jessamine, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, Woodford

Northern Kentucky District Point of Entry

NorthKey Community Care: 502 Farrell Drive Covington, Ky., 41011 / (859) 578-3200

St. Elizabeth: Community Outreach Building 4900 Houston Road Florence, Ky., 41042 (859) 655-1195

Counties served: Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen, Pendleton Pennyrile District Point of Entry 400A Hammond Plaza, Hopkinsville, Ky., 42240 (270) 886-5186 / (877) 473-7766

Counties served: Caldwell, Christian, Crittenden, Hopkins, Lyon, Muhlenberg, Todd, Trigg

Purchase District Point of Entry 425 Broadway, Suite 204, Paducah, Ky., 42001 (270) 442-6223 / (800) 648-6599

Counties served: Ballard, Carlisle, Calloway, Fulton, Graves, Hickman, Livingston, Marshall, McCracken.

Kentucky IMPACT Program

275 E. Main St., 4W-G, Frankfort , Ky., 40621 (502) 564-4456

Kentucky IMPACT is a statewide program that coordinates services for children with severe emotional disabilities and their families. IMPACT serves children and youth of all ages. https://dbhdid.ky.gov/dbh/kyimpact.aspx

The Kentucky Office of Vocational Rehabilitation

The Mayo-Underwood Building

500 Mero St.,4th floor NE, Frankfort, Ky., 40601 (502) 564-4440 / (800) 372-7172

The Kentucky Office of Vocational Rehabilitation (OVR) assists Kentuckians with disabilities to achieve suitable employment and independence. The organization recognizes and respects the contribution of all individuals as a necessary and vital part of a productive society. https://kcc.ky.gov/Vocational-Rehabilitation

To find a Regional office, visit: https://kcc.ky.gov/Pages/

Kentucky Transitions (Money Follows the Person Demonstration Grant)

275 East Main St., 6 W-B, Frankfort, Ky., 40621 (502) 564-0330 / (877) 564-0330

Kentucky Transitions helps people move out of nursing facilities or institutions and into their own homes. The Department for Medicaid Services developed the program in 2008 with a Money Follows the Person demonstration

grant from the Centers for Medicare and Medicaid Services. Kentucky Transitions has helped more than 750 people leave institutional care. https://chfs.ky.gov/agencies/dms/dca/Pages/kytransitions.aspx

Medicaid Waiver Provider Directory

The Provider Directory is maintained by the Division of Developmental & Intellectual Disabilities. Contact information for provider agencies certified to provide SCL/Michelle P. Medicaid waiver services may be accessed in this interactive map. https://dbhdid.ky.gov/ProviderDirectory/ProviderDirectory.aspx

Division of Community Alternatives Medicaid Waivers

275 E. Main St., 6W-B, Frankfort, Ky., 40621 (855) 459-6328 / (502) 564-1647

If you have a disability or are elderly, you may qualify for a 1915(c) Home- and Community-Based Services (HCBS) Medicaid waiver. These waivers provide the support you need to live as independently as possible. The Department for Medicaid Services (DMS) offers six waiver programs:

ABI Acute and ABI Long-Term Care Waivers; Home and Community Based (HCB) Waiver; Model II Waiver (MIIW); Michelle P. Waiver; Supports for Community Living (SCL) Waiver; Kentucky Transitions. chfs.ky.gov/agencies/dms/dca/Pages/default.aspx

Pathways to Careers and Special Programs

300 Sower Blvd., 5th Floor, Frankfort, Ky., 40601 (502) 564-4286 https://education.ky.gov/CTE/Pages/default.aspx

Personal Care Attendant Program Department for Aging and Independent Living

275 E. Main St., 3E-E, Frankfort, Ky., 40621 (502) 564-6930 Ext 3477

The Personal Care Attendant Program helps severely physically disabled adults at risk of being institutionalized to live in their own homes and communities by subsidizing costs of personal attendant services. chfs.ky.gov/agencies/dail/Pages/pcap.aspx

Social Security Administration

(800) 772-1213 / www.ssa.gov

Regional Offices: https://www.benefitsoffices.com/state/index. php?st=KY&page=1

Ashland

1405 Greenup Ave., Room 132, Ashland, Ky., 41101 (866) 269-3993

Bowling Green

2724 Chandler Drive, Bowling Green, Ky., 42104 (877) 801-0817

Campbellsville

101 Hiestand Farm Road, Campbellsville, Ky., 42718 (877) 828-1695

Corbin

159 Future Drive, Corbin, Ky., 40701 (877) 405-0470

Danville

103 Belinda Blvd., Danville, Ky., 40422 (877) 512-3850

Elizabethtown

591 Westport Road, Elizabethtown, Ky., 42701 (866) 596-7123

Florence

7 Youell St., Florence, Ky., 41042 (800) 772-1213

Frankfort

140 Flynn Ave., Frankfort, Ky., 40601 (866) 964-1724

Harlan

189 Village Center, Harlan Ky., 40831 (888) 590-2707

Hazard

122 Reynolds Lane, Hazard, Ky., 41701 (877) 405-0491

Henderson

2000 North Elm, Henderson Ky., 42420 (855) 628-1593

Hopkinsville

1650 Marie Drive, Hopkinsville, Ky., 42240 (877) 405-7656

Jackson

850 KY-15 N., Jackson, Ky., 41339 (866) 366-4920

Lexington

2241 Buena Vista Road, Lexington, Ky., 40505 (866) 530-7754

Louisville

10503 Timberwood Circle, Louisville, Ky., 40223 (888) 280-5851

Louisville

601 W. Broadway, Louisville, Ky., 40202 (866) 716-9671

Madisonville

4431 Hanson Road, Madisonville, Ky., 42431 (877) 626-9912

Mayfield

1526 Cuba Road, Mayfield, Ky., 42066 (866) 931-8366

Maysville

509 Market Place Drive, Maysville, Ky., 41056 (855) 807-8802

Owensboro

4532 Lucky Strike Loop, Owensboro, Ky., 42303 (866) 836-5834

Paducah

125 Brett Chase Road, Paducah, Ky., 42003 (866) 614-7905

Pikeville

333 Hambley Blvd., Pikeville, Ky., 41501 (888) 676-2942

Prestonsburg

1897 Ky. Route 321, Prestonsburg, Ky., 41653 (888) 450-4538

Richmond

1060 Gibson Bay Drive, Richmond, Ky., 40475 (866) 838-8945

Somerset

3975 U.S.-27, Somerset, Ky., 42501 (877) 714-0375

ADOPTION AND FOSTERING

Adoption Support for Kentucky

UK College of Social Work, 619 Patterson Office Tower

Lexington Ky., 40511 / (859) 257-6650 (888)-44-ASKKY / ask@uky.edu

Adoption Support for Kentucky (ASK) is an awardwinning program that utilizes innovative training modalities and inclusive support group practices to meet the needs of foster, adoptive, relative, and fictive-kin caregivers throughout the Commonwealth. https://socialwork.uky.edu/centers-labs/training-resourcecenter/adoption-support-for-kentucky/

The Bair Foundation

2393 Alumni Drive, Suite 205, Lexington, Ky., 40517 (859) 519-3273

Bair Foundation is a therapeutic Foster Care agency in the process of getting the certification for caring for medically complex children. Bair Foundation foster care families are specially trained to care for children with medical and behavioral needs. Bair Foundation provides trauma-informed care for all children, helping them face challenging behaviors, and provides them with stable environments while focusing on the child’s strengths. www.bair.org

Benchmark Family Services

Therapeutic Foster Care, Kentucky Administrative Office 160 Burt Road, Lexington, Ky., 40503 (859) 899-9515

Provides quality out-of-home placements for youth in need by working with referring agencies to guarantee the support, treatment and care they deserve. Serves children with emotional, mental and physical disabilities along with youth who have been severely neglected or abused. Therapeutic services include training of foster families. Benchmark Family Services has offices in Berea, Bowling Green, Columbia, Corbin, Elizabethtown, Florence, Hazard, Irvine, Lexington, London, Louisville, Madisonville, Morehead, Owensboro, Owenton, Prestonsburg and Somerset. / www.benchmarkfamilyservices.org

Best Point (Formerly Children’s Home of Cincinnati) 5050 Madison Road, Cincinnati, Ohio, 45227 (513) 272-2800 / (513) 808-9632

Best Point is a private, non-profit social service agency that improves the lives of children and their families through services in four areas: adoption, early childhood, education and mental health. Best Point serves children of all ages and their families, including adoptive children, new parents needing support and guidance, children with special education needs, and children with mental health diagnoses. / www.tchcincy.org

Kentucky Faces

275 East Main St., 3C-E, Frankfort, Ky., 40621 (502) 564-7043

DCBS/Adoption Service https://prd.webapps.chfs.ky.gov/kyfaces

Key Assets Kentucky

961 Beasley St., Suite 160 &170, Lexington, Ky., 40509 859-226-5022

Key Assets provides support for specialized foster parents who care for children with developmental delays or autism. www.keyassetskentucky.com

THE ARTS

Allegro Dance Project

(715) 252-6137 / info@allegrodanceproject.org

Based in Lexington, Allegro Dance Project is a nonprofit contemporary dance company specializing in Inclusive dance outreach for children with Down syndrome, Autism Spectrum Disorder and other specific needs. www.allegrodanceproject.org

Arts for All Kentucky

P.O. Box 3320, Bowling Green, Ky., 42102 (270) 792-0023 / programs@artsforallky.org

Non-profit organization dedicated to providing inclusive arts and education programs for children, youth and adults with disabilities, in addition to professional development for artists and teachers in schools and communities statewide. Offers an under-served population equal opportunity to explore the arts in a way that is fully accessible. Through participatory involvement with trained professionals and volunteers, people with disabilities learn new creative and social skills that open doors to new opportunities. www.artsforallky.org

Latitude Artist Community

740 National Ave., Suite 180, Lexington, Ky., 40502 (859) 806-0195

Latitude is an art studio that serves all people, with an emphasis on those who are considered to have a disability. The multimodal activities, workshops and community outreach events form a framework that encourages us to recognize our own life’s narrative, and to then choose ways in which we may contribute to the well-being of our community. www.latitude-arts.com

Lexington Children’s Theatre

418 W. Short St., Lexington, Ky., 40507 (859) 254-4546

LCT is committed to creating an environment where everyone feels welcome to enjoy the magic of theatre. Join LCT for sensory friendly performances that are designed to be a safe environment where young people with sensory sensitivities or disabilities, first-time theatre goers, young children, and their friends and family are free to speak, respond and move around the seating area in reaction to the story. ASL interpretation and audio description are also available. www.lctonstage.org/tickets/access-at-lct/

The SHINE House

402 North Main St., Somerset, Ky., 42501

(606) 416-5380

The SHINE House is a non-profit community arts center whose goal is to provide instruction in a variety of visual arts forms in a creative educational space developed with inclusion in mind. www.theshinehouse.com

Wildwood Music Therapy

2375 Professional Heights Dr., Suite 134C Lexington, Ky., 40503 (270) 869-5165

Board-certified music therapists provide music therapy and adaptive music lesson services for all ages and abilities. Sessions celebrate strengths and help clients achieve their goals. / wildwoodmusictherapy.com

ASSISTIVE TECHNOLOGY

Carl D. Perkins Vocational Training Center

5659 Main St., Thelma, Ky., 41260 (606) 788-7080 / emily.jackson@ky.gov

The mission of the Carl D. Perkins Vocational Training Center is that persons will achieve sustainable, competitive integrated employment, maximize independence, and gain self-respect through the provision of comprehensive services. Consumers may live on campus in dormitory housing or can commute to the Perkins Center each day they are scheduled for classes and/or therapy. https://kcc.ky.gov/Vocational-Rehabilitation/cdpvtc/Pages/ default.aspx

HDI Center for Assistive Technology Services

2358 Nicholasville Road, Suite 180, Lexington, Ky., 40503 / (859) 218-7979

(CATS) is a non-profit, grassroots organization that assists individuals who have disabilities, their families and service providers in connecting with various technologies and services that provide the gateway to greater independence, productivity and quality of life. CATS is a member of the Alliance for Technology Access, The Eastern Regional Center for the Kentucky Assistive Technology Service (KATS) Network. www.hdi.uky.edu/HDICATS / www.facebook.com/ HDICATS

KATS (Ky. Assistive Technology Service Network Coordinating Center)

8412 Westport Road, Louisville, Ky., 40242 (800) 327-5287 / Info@katsnet.org

The Kentucky Assistive Technology Locator is a free service of the KATS Network that connects Kentuckians to the AT devices they need to live independently. By registering for an account, you can borrow devices to try, find used devices for free or low-cost, sell used devices, give away devices or place want ads for devices you need. www.katsnet.org

KATS Project CARAT

(800) 327-5287

A program of KATS, CARAT enables underserved individuals with disabilities in the Appalachian region of Kentucky by collecting, refurbishing and redistributing assistive technology and durable medical equipment through a collaborative network of partners. The goal of Project CARAT is to make Assistive Technology and Durable Medical Equipment more accessible to those who need it in rural Kentucky. In order to make this happen, Project CARAT is partnering with agencies across the state. To request equipment or for donation information, call the ProjectCARAT Hotline at (800) 327-5287. https://www.katsnet.org/services/at-reuse/

Kentucky Assistive Technology Loan Corp. Mayo-Underwood Building

500 Mero St., 4th Floor NE, Frankfort Ky., 40601 (877) 675-0195

The Kentucky Assistive Technology Loan Corporation (KATLC) offers low interest loans for qualified applicants with disabilities for assistive technology. Notice: May 2022: The Kentucky Assistive Technology Loan Corporation will be going through a reorganization. As a part of this process, KATLC will be looking for a new lending partner. The Board of Directors anticipate this being a six to nine month process. / www.katlc.ky.gov

Ky. Department of Education Special Education and Early Learning

300 Sower Blvd., 5th Floor, Frankfort, Ky., 40601 (502) 564-4970 / gretta.hylton@education.ky.gov

The Office of Special Education and Early Learning (OSEEL) works to improve educational outcomes for diverse and early learners through training and coaching for local district staff and teachers, technical assistance, guidance and policy documents, and providing supports for students and their families. www.education.ky.gov/specialed/Pages/default.aspx

Redwood Assistive Technology Center

71 Orphanage Road, Ft. Mitchell, Ky., 41017 (859) 331-0880 / www.redwoodnky.org

Western Kentucky Assistive Technology Center

Wendell Foster’s Campus 815 Triplett St., Owensboro, Ky., 42302 / (270) 683-4517 https://wendellfoster.org

AUTISM

Autism Society of the Bluegrass

P. O. Box 24212, Lexington, Ky., 40524-2412

Established in 1991 and a chapter of the Autism Society of America, ASBG is an all-volunteer group of families, caregivers and self-advocates. The mission is to provide community, education, advocacy and support to those impacted by Autism Spectrum Disorder. ASBG hosts monthly meetings with speakers on a wide variety of topics related to autism. It also operates a discussion

board and is active on social media. Everyone, including individuals, families, educators, therapists and healthcare providers, are welcome to participate. www.asbg.org / www.youtube.com/user/autismsocietybg www.facebook.com/Autism-Society-of-theBluegrass-122689954438582/

Autism Society of Greater Cincinnati P.O. Box 75, Milford, Ohio, 45150 (513) 561-2300 / info@autismcincy.org

ASGC works to promote awareness and education about autism. ASGC provides information packets, support groups for families and individuals, newsletters and public speakers. www.autismcincy.org

Autism Society of Kentuckiana P.O. Box 21895, Louisville, Ky., 40221-0895

Rebecca Thompson, Kentucky Resident Contact (502) 263-5708 / info@ask-lou.org www.ask-lou.org

Capital Area Autism Parents (CAAP) (502) 330-5223 / capitalareaautism@gmail.com

Established in 2013, Capital Area Autism Parents is a support group for parents, caregivers, autistic selfadvocates, and neurodivergent voices. Support group members will find resources, information, opportunities, and friendships. CAAP hosts meetings with speakers and events to bring awareness and education to the Central Kentucky community. CAAP values individuality and the uniqueness of every journey. Capital Area Autism Parents believes no one should walk this journey alone and support is essential for every individual. www.facebook.com/groups/CAAP2

Families for Effective Autism Treatment 1100 E. Market St., Louisville, Ky., 40206 (502) 774-0797

Families for Effective Autism Treatment (FEAT) of Louisville is a non-profit organizationthat actively supports and funds autism programs for the entire family. www.featoflouisville.org

Hopebridge

Provides a full range of professional services in one location for a child with Autism Spectrum Disorder and other developmental delays.

Locations:

Lexington: 1300 E. New Circle Road, Suite 150, Lexington, Ky. 40505 / (859) 685-1019

Louisville East: 215 South Hurstbourne Parkway, Suite 213, Louisville, Ky., 40222 / (502) 353-2074

Louisville South: 175 Market Place Drive, Suite A, Louisville, Ky.,40229 / (502) 251-7002

Louisville Area: 355 Quartermaster Ct. Jeffersonville, Ind., 47130 / (812) 258-9802

Bowling Green: 2427 Russellville Road, Bowling Green, Ky., 42101 / (270) 936-7472 www.hopebridge.com

The Kelly Autism Program

Western Kentucky University Clinical Education Complex, 104 Alumni Ave.,

Bowling Green, Ky., 42101 / (270) 745-4232 cec@wku.edu

The Kelly Autism Program offers educational support through Individual Education Plan assistance, classroom adaptations and tutoring, community involvement through active participation in community activities, social and leisure activities, job coaching, and parent support. www.wku.edu/kellyautismprogram

Ky. Autism Training Center at Kosair Charities University of Louisville 1405 E. Burnett Ave., Louisville, Ky., 40217 (502) 852-4631 / (800) 334-8635 ext. 852-4631 katc @ louisville.edu www.louisville.edu/education/kyautismtraining

Norton Child Development and Genetic Center

411 E. Chestnut St., Louisville, Ky., 40202 (502) 588-0850

Provides center-based and outreach diagnostic evaluations and treatment to infants and children with, or at risk for, developmental disabilities, congenital anomalies, genetic disorders, autism, organic behavior disorders (ADHD) and learning disabilities, as well as genetic counseling to adults. http://louisville.edu/medicine/departments/pediatrics/ divisions/developmental-behavioral-genetics

PACT: Police Autism Community Training

PACT is a non-profit program aimed at educating and raising autism awareness within Kentucky’s law enforcement departments. PACT seeks to increase awareness and knowledge through a classroom session focused on improving miscommunication among law enforcement officials and individuals with autism. www.pactautism.com

CAMPS AND RECREATIONAL ACTIVITIES

Bowling Green Parks and Recreation Special Populations Division

225 E. Third Ave., Bowling Green, Ky., 42101 (270) 393-3265 / cameron.levis@bgky.org

Programs and services offered provide all individuals, regardless of their ability level, opportunities for recreation and leisure. People with and without disabilities participate side by side in an inclusive environment. Activities include Bowling Green Special Olympics (softball, basketball, flag football, bowling, cheerleading, swimming, and track and field), adapted sports (wheelchair basketball, wheelchair tennis and goal ball), and social gatherings (holiday parties, movie nights, dances and more). www.bgky.org/bgpr/special-populations

Camp Discovery

33 W. Second St., 3rd Floor, Maysville, Ky., 41056

(606) 301-8338 / dsugarbaker@maysvilleinitiatives.com

A free, summer-long day camp for children aged 5-12 at Beechwood Park in Maysville. Swimming, field trips and supervised activities. The camp is open to children with disabilities. maysvilleinitiatives.com/camp-discovery/

Camp Hendon

1640 Lyndon Farm Court, Suite 108, Louisville, Ky., 40223 / (502) 272-2370 / info@camphendon.org

Camp Hendon is an all-volunteer camp for children (ages 8-17) with Type I diabetes. The camp provides two separate week-long residential camping sessions to empower children to take control of their journey with diabetes. / www.camphendon.org

Cassidy’s Cause Therapeutic Riding Academy

6075 Clinton Road, Paducah, Ky., 42001 (270) 554-4040

Cassidy’s Cause is a nonprofit organization whose mission is to provide individuals living with disabilities the opportunity to grow and develop through therapeutic, educational and recreational activities, while on a horse. www.cassidyscause.org

The Center for Courageous Kids

1501 Burnley Road, Scottsville, Ky., 42164 (270) 618-2900 / info@courageouskids.org

The Center for Courageous Kids (CCK) is a medical camp where children with disabilities or life-threatening illnesses will experience what a real camp is like, in a setting that is physically safe and medically sound. The camp offers children who are typically watching rather than participating the opportunity to fully engage in camp activities that focus on their abilities. Illness specific summer camps for children (7-15) and illness specific family weekend retreats, free of charge. www.courageouskids.org

Central Kentucky Riding for Hope

4185 Walt Robertson Drive inside the Kentucky Horse Park, Lexington, Ky., 40583 (859) 231-7066 / pat@ckrh.org

Operated at the Kentucky Horse Park

Under the guidance of trained teachers, volunteers and medical personnel, disabilities are challenged and new abilities are created. The program has proved successful in helping people with disabilities develop self-esteem, confidence, coordination and a sense of achievement while learning horsemanship and track riding principles. www.ckrh.org

Dream Riders of Kentucky Inc.

4705 Winkler Road, Philpot, Ky., 42366 (270) 613-0079 / dreamridersofkentucky@gmail.com

The mission of Dream Riders is to provide individuals with physical, cognitive, social, and/or emotional needs an opportunity to experience the joy of riding and the therapeutic value of horses. www.dreamridersofky.org

Easter Seals Adaptive Recreation

2050 Versailles Road, Lexington, Ky., 40504

(859) 367-7217 / cindy.jacobelli@cardinalhill.org

Promotes healthy and active lifestyles for people with physical disabilities through education, exposure to adaptive equipment and adaptive recreation experiences in the community. www.cardinalhill.org/programs/adaptive-recreation

Kamp KESSA

758 Beechridge Road, Frankfort, Ky., 40601 (502) 376-4367

A non-profit resident camp serving populations who are at-risk and have special needs. Kamp KESSA provides adventure education and treatment programs utilizing horses and the wilderness. www.cedarfire.net

Josephine Sculpture Park

3355 Lawrenceburg Road, Frankfort, Ky., 40601 (502) 352-7082 / info@josephinesculpturepark.org

Interact with nearly 70 works of art as you explore 30 acres of walking paths through native meadows. The Park partners with schools and organizations to provide arts and nature programming to individuals with a disability. The Park is committed to making park grounds accessible for those with physical disabilities, and golf carts are available for those who need mobility assistance. (Please call or email before your visit to reserve). https://josephinesculpturepark.org

Legacy All Sports

261 Ruccio Way, Lexington, Ky., 40503 (859) 977-8862

Carousel Kidz is a program to meet your child’s special needs with one-on-one gymnastics lessons. http://legacyallsports.com/about-us/

Lex. Parks and Recreation Therapeutic Recreation

Dunbar Community Center, 545 N. Upper St., Lexington, Ky., 40508 / (859) 288-2900 jfarmer2@lexingtonky.gov

Therapeutic Recreation programs provide opportunities for individuals with disabilities to enjoy activities through recreation, leisure and play, and to showcase their talents and abilities. Programs are designed to enhance the overall health, wellness and social needs of individuals with disabilities. A variety of recreation and sport opportunities are available such as adult fitness, adaptive aquatics, archery, Miracle League Baseball, cooking, summer camps, drama, hand drumming, art, day-trip outings, overnight excursions, bowling, horsemanship, dance class, special events, Zumba, yoga and more. www.lexingtonky.gov/tr

Louisville Parks and Recreation Adaptive and Inclusive Recreation

1300 Heafer Road, Louisville, Ky., 40223 (502) 456-8148

Offers adaptive sports and recreation for people in Jefferson and outlying counties. Programs include the state’s only Paralympics Sports Club, plus health and wellness classes such as nutrition, yoga, and exercise and strength training classes. Sports offerings include wheelchair basketball, wheelchair tennis, bocce ball, pickle ball and wheelchair pickle ball, archery, adaptive golf, goal

ball and beep baseball for people with low or no vision. Clinics are offered in track & field, wheelchair lacrosse, sled hockey and more. Louisville is also home to the state wheelchair basketball team, Louisville Spokes & Spires. https://louisvilleky.gov/government/parks/berrytownrecreation-center-adaptive-and-inclusive-recreation

LYSA’s TOPSoccer Program

Lexington Sporting Club (indoor facility) 404 Sporting Court, Lexington, Ky., 40503 (859) 223-5632

TOPSoccer (The Outreach Program for Soccer) is a community-based soccer program designed to meet the needs of athletes with physical, developmental, and/or intellectual disabilities. Player participation and development are key elements of the program. TOPSoccer is designed to improve the overall fitness, selfesteem and social skills of your athlete. www.lysa.org/topsoccer

Special Olympics Kentucky 105 Lakeview Court, Frankfort, Ky., 40601 (502) 695-8222 / soky@soky.org

Special Olympics is the world’s largest program of sports training and competition for children and adults with intellectual disabilities. / www.soky.org

Toyota Bluegrass Miracle League

Central Lexington YMCA 239 East High St., Lexington, Ky., 40507 (859) 367-7515

A baseball program for youth and adults with special needs. The leagues play on a specially designed field located at Shillito Park in Lexington. The all-accessible field is the only one of its kind in Kentucky with leagues in both spring and fall. www.facebook.com/pages/category/Disability-Service/ Toyota-Bluegrass-Miracle-League-59145356197

community activities and the business world benefits individuals and their respective communities. www.dsagc.com

Down Syndrome Association of the Heartland

P.O. Box 6402, Elizabethtown, Ky., 42702-6402 (270) 312-1540 / info@dsheartland.org

This organization offers support to individuals with Down syndrome, as well as their families, friends, caregivers, teachers and coworkers. Plus, this organization strives to educate the public-at-large about Down syndrome. It is the desire of Down syndrome Association of the Heartland for every individual who has been touched by Down syndrome, regardless of age, to have access to support and services that would aid each individual in reaching his or her individual potential. / www.dsheartland.org

Green River Area Down Syndrome Association

Owensboro and surrounding area P.O. Box 2031, Owensboro, Ky., 42302 (270) 681-5313 / info@gradsa.org

GRADSA’s mission is to enable families enriched with Down syndrome connection to share resources, build friendships, and advocate together for the future of individuals with Down syndrome. / www.gradsa.org

Down Syndrome of Louisville 5001 South Hurstbourne Parkway, Louisville, Ky., 40291 (502) 495 5088

Down Syndrome of Louisville is a non-profit organization founded in 1977 whose mission is to improve the lives of persons with Down syndrome and their families by providing support, information, education, and advocating for their rights and concerns, enabling individuals to reach their full potential. https://dsoflou.org

Down Syndrome Association of South Central Ky. 522 State St., Bowling Green, Ky., 42101 (270) 796-5002 / info@dssky.org / www.dssky.org

DOWN SYNDROME

Down Syndrome Association of Central Kentucky 2265 Harrodsburg Road, Suite 370, Lexington, Ky., 40504 / (859) 494-7809

DSACK exists to celebrate the Down syndrome community, support individuals with Down syndrome and their families, educate the Central Kentucky community and assist in local and national research efforts. DSACK celebrates that all people are beautiful, capable and loved. Serves Central and Eastern Kentucky. www.dsack.org

Down Syndrome Association of Greater Cincinnati 4623 Wesley Ave., Suite A, Cincinnati, Ohio, 45212 (513) 761-5400

By providing families with support, inspiration and information, the Association helps individuals with Down syndrome achieve their maximum potential. Including individuals with Down syndrome in neighborhood schools,

Down Syndrome Association of Western Kentucky P.O. Box 7366, Paducah, Ky., 42002-7366 (270) 559-9026 / upsandowns@dsawk.com

DSAWK promotes public awareness and acceptance of individuals with Down syndrome by providing information, resources and support in the community. Generally, meetings are on the third Monday of the month at the Heartland Worship Center in Paducah. / www.dsawk.com

National Down Syndrome Congress (NDSC) 30 Mansell Court, Suite 108, Roswell, Georgia, 30076 (770) 604-9500 / info@ndsccenter.org

The NDSC provides up-to-date information on topics of interest to people with Down syndrome, family members, friends, professionals and interested others. The Center works to promote the availability of and accessibility to a full range of opportunities and/or resources that meet individual and family needs. / www.ndsccenter.org

National Down Syndrome Society (NDSS) 1155 15th Street NW, Suite 540, Washington, D.C.,

20005 / (800) 221-4602 / info@ndss.org

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. www.ndss.org

EDUCATION

The Council for Exceptional Children

3100 Clarendon Blvd., Suite 600, Arlington, Va., 22201 (888) 232-7733 / TTY (866) 915-5000

The largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. CEC is known as the source for information, resources, and professional development for special educators. www.cec.sped.org

EKU Center for Student Accessibility

521 Lancaster Ave., Whitlock Building, Room 361 CPO 66, Richmond, Ky., 40475 (859) 622-2933 / accessibility@eku.edu

Provides equal access to University resources, coursework, programs and activities by serving qualified individuals, and advocating for equal access for all individuals who qualify. www.accessibility.eku.edu

Kentucky Department of Education: Special Education Services

300 Sower Blvd., 5th Floor, Frankfort, Ky., 40601 (502) 564-4970 / veronica.sullivan@education.ky.gov

This site includes information on all aspects of special education programs in public schools. We welcome your comments and suggestions. If you need further assistance with finding information on special education programs in Kentucky’s public schools, please contact us. www.education.ky.gov/specialed/excep/Pages/default.aspx

Kentucky PTA

148 Consumer Lane, Frankfort Ky., 40601 or P.O. Box 654, Frankfort, Ky., 40602-0654 (502) 226-6607 / support@kypta.org www.kypta.org

Kentucky State Department of Education

300 Sower Blvd., 5th Floor, Frankfort, Ky., 40601 (502) 564-3141 / education.ky.gov

Kentucky State University Office of Disability Services

400 E. Main St., Frankfort, Ky., 40601 Hathaway Hall Office, Suite 107 (502) 597-6041 / phillip.clay@kysu.edu

The vision of the Office of Disability Services is to provide equal access and opportunities throughout the campus to individuals who have a disability, for academic and social success. www.kysu.edu/academics/disability-svcs/index.php

Maysville Community and Technical College

Office of Disability Support Services

1755 US Hwy. 68, Maysville, Ky., 41056 (606) 759-7141

MCTC assures equal access through services and accommodations for students with disabilities. https://maysville.kctcs.edu/about/student-life/studentsupport-services/accessibility-services.aspx

Morehead State University Disability Service

Adron Doran University Center, Suite 202, Morehead, Ky., 40351 / (606) 783-5188 m.litton@moreheadstate.edu

This office ensures that the university’s programs, activities, services and the campus itself are accessible to all students and visitors. www.moreheadstate.edu/disability

Northern Kentucky University Office of Disability Services

Louie B. Nunn Dr., Student Union, Suite 303 Highland Heights, Ky., 41099 (859) 572-5282 / osa@nku.edu

NKU provides learner-centered assistance and resources to students with disabilities in their transition to Northern Kentucky University. / inside.nku.edu/disability.html

Public School Parent Resource Centers, Cabinet for Health and Family Services

275 E. Main St., 3C-G, Frankfort, Ky., 40621 (502) 564-4986 / mysti.white@ky.gov

Nearly all public schools in the state have Parent Resource Centers, which are divided into 11 Regions. The mission is to remove nonacademic barriers to learning as a means to enhance student academic success. The Centers are also places where families of children with special needs can receive parent-to-parent counseling on special education issues and concerns. Families are welcome to visit and preview materials from the lending library, which has many books, videotapes and periodicals related to disability. The staff can connect parents to resources and support groups and also help with online research. https://chfs.ky.gov/agencies/dfrcvs/dfrysc/Pages/regions. aspx

Regional Offices:

Region 1: Program Manager William Owen (270) 339-2192 / william.owen@ky.gov

Counties Served: Ballard, Caldwell, Calloway, Carlisle, Christian, Crittenden, Graves, Fulton, Hickman, Hopkins, Livingston, Lyon, Marshall, McCracken, Muhlenberg, Todd, Trigg. Plus: Dawson Springs Independent, Fulton Independent, Mayfield Independent, Murray Independent, Paducah Independent.

Region 2: Program Manager Heather McCarty (270) 285-2553 / heather.mccarty@ky.gov

Counties Served: Butler, Daviess, Hancock, Henderson, Logan, McLean, Ohio, Simpson, Union, Warren, Webster Region 3A: Program Manager Naela Imanyara (502) 271-7720 / naela.imanyara@ky.gov

Region 3B: Program Manager

Andrea Pike-Goff (270) 980-9134 / andrea.pikegoff@ky.gov

County Served: Jefferson

Region 4: Program Manager Betty Pennington (859) 227-8206 / betty.pennington@ky.gov

Counties Served: Boone, Campbell, Carroll, Gallatin, Henry, Kenton, Oldham, Owen, Shelby, Trimble

Region 5: Program Manager Paul Cookendorfer (859) 230-2104 / paul.cookendorfer@ky.gov

Counties Served: Anderson, Bourbon, Clark, Franklin, Grant, Harrison, Jessamine, Madison, Mercer, Nicholas, Pendleton, Scott, Woodford

Region 6: Program Manager Maggie Myers (859) 200-7777 / maggie.myers@ky.gov

Counties Served: Bullitt, Boyle, Casey, Clinton, Cumberland, Garrard, Lincoln, Marion, McCreary, Nelson, Pulaski, Russell, Spencer, Taylor, Washington, Wayne Region 7: Program Manager Doug Jones (606) 207-4287 / wdouglas.jones@ky.gov

Counties Served: Bath, Boyd, Bracken, Carter, Elliott, Fleming, Greenup, Johnson, Lawrence, Lewis, Martin, Mason, Menifee, Montgomery, Morgan, Robertson, Rowan Region 8: Program Manager Teresa Combs (606) 272-7031 / teresa.combs@ky.gov

Counties Served: Breathitt, Floyd, Knott, Lee, Leslie, Letcher, Owsley, Perry, Pike, Wolfe Region 9: Program Manager Russell Jones (606) 545-2110 / russell.jones@ky.gov

Counties Served: Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley Region 10: Program Manager Lisa Gay (859) 661-9629 / lisa.gay@ky.gov

County Served: Fayette Region 11: Program Manager Sherrie Baughn Martin / (270) 505-6533 / sherrie.martin@ky.gov

Counties Served: Adair, Allen, Barren, Breckinridge, Edmonson, Grayson, Green, Hardin, Hart, Larue, Meade, Metcalfe, Monroe.

Special Needs Homeschooling

A blog written by a mother with children with special needs, the author provides resources she has found helpful in homeschooling her children. www.specialneedshomeschooling.com

University of Kentucky Disability Resource Center 725 Rose St., Multidisciplinary Science Building Suite 407, Lexington, Ky., 40536 (859) 257-2754 / drc@uky.edu

The DRC provides services to the University community so students with disabilities have an equal opportunity to fully participate in all aspects of University life. www.uky.edu/DisabilityResourceCenter

University of Louisville Disability Resource Center 119 Stevenson Hall, Louisville, Ky., 40292 (502) 852-6938 / askdrc@louisville.edu

In recognition of disability as an important part of the diversity of the community, the DRC fosters an inclusive campus climate through education, service, collaboration, and outreach to the University of Louisville community. www.louisville.edu/disability

Western Kentucky University

Student Accessibility Resource Center 1906 College Heights Blvd., Suite 21052

Bowling Green, Ky., 42101 Downing Student Union, First Floor, 1074 (270) 745-5004 / sarc.connect@wku.edu

The goal of the SARC is to ensure that all students with disabilities are provided access to all facets of the Western Kentucky University experience; to facilitate and coordinate support services and programs that enable students with disabilities to maximize their educational potential; and to increase awareness among all members of the University so that students with disabilities are able to achieve academic success based on their abilities, not their disabilities. www.wku.edu/sarc

EPILEPSY

Epilepsy Council of Greater Cincinnati 895 Central Ave., Suite 550, Cincinnati, Ohio, 45202 (513) 721-2905 / (877) 804-2241 eao@epilepsy-ohio.org www.epilepsy-ohio.org

Epilepsy Foundation of Kentuckiana Kosair Charities Centre, 982 Eastern Parkway Louisville, Ky., 40217 (502) 637-4440 / (866) 275-1078 www.efky.org

LEARNING DIFFERENCES

Dyslexia Association of the Pennyrile 538 A Noel Ave., Hopkinsville, Ky., 42240 (270) 885-5804 / www.hopkinsvilledyslexia.com

The International Dyslexia Assn. – Ky. Branch P.O. Box 22006, Louisville., Ky., 40252 (502) 276-5153 / kentuckybranchida@gmail.com ky.dyslexiaida.org

LD Online

The world’s leading website on learning disabilities and ADHD. / www.ldonline.org

Learning Disabilities Association of Kentucky 2210 Goldsmith Lane, Suite 118, Louisville, Ky., 40218 (502) 473-1256

This comprehensive mental health professional program includes the “co-morbid” disorders often found with individuals with learning disabilities, including anxiety, depression, obsessive compulsive disorder, anger control/ bipolar disorder, and ADHD. / www.LDAofky.org

Ohio Valley Branch of the International Dyslexia Association OVBIDAtutorline@yahoo.com

A non-profit, scientific and educational organization dedicated to the study and treatment of dyslexia. This Branch was formed to increase public awareness of dyslexia in the Southern Ohio, Southeast Indiana, Kentucky and Huntington, West Virginia areas. ohv.dyslexiaida.org

Progressive Educational Program, Inc. Cress Certified 212 Venture Way, Somerset, Ky., 42503 (606) 677-2514 contact@progressiveeducationalprogram.com

Dyslexia Tester. Specializing in tutoring children with Dyslexia. / www.progressiveeducationalprogram.com

Wilson Pediatric Therapy & Learning

424 Lewis Hargett Circle, Suite B 100, Lexington, Ky., 40503 / (859) 475-4305

Working with children with dyslexia and other learning differences. / www.wilsonpediatric.com

LEGAL & FUTURE’S PLANNING

Children’s Law Center

Covington Office: 1002 Russell St., Covington, Ky., 41011 / (859) 431-3313 / info@childrenslawky.org

Lexington Office: c/o Imani Family Life Center

215 W. Short St., Suite 205, Lexington, Ky., 40507 (859) 253-3353 / info@childrenslawky.org

Provides free legal services for children with educational disabilities, and performs research and policy work, training and education in this area. www.childrenslawky.org

Court Appointed Special Advocates for Children

Kentucky CASA Network, 1640 Lyndon Farm Court, Suite 108, Louisville, Ky., 40223 / (502) 238-2154

CASA volunteers are everyday citizens appointed by judges to advocate for the safety and well-being of abused and neglected children. Last year in Kentucky, more than 800 CASA volunteers advocated for the best interest of nearly 3,000 children in Kentucky. CASA has 20 offices throughout the state. To locate one in your area, visit the web site below. www.kentuckycasanetwork.org

ElderLaw Lexington

McClelland & Associates, PLLC, 1795 Alysheba Way, Suite 2102, Lexington, Ky., 40509 (859) 543-0061

Specializing in aspects of elder law and special needs planning. / www.elderlawlexington.com

Kentucky Division of Protection and Permanency

275 E. Main St., 3E-A, Frankfort, Ky., 40621 (502) 564-6852

If you believe a child is being abused, neglected or is dependent, call the Protection and Permanency office in your county or the Toll Free Child Protection Hot Line.

(877) KYSAFE1 or (877) 597-2331. chfs.ky.gov/agencies/dcbs/dpp/Pages/default.aspx

Kentucky Office of Victims Advocacy

1024 Capital Center Drive, Suite 200 Frankfort, Ky., 40601 / (502) 696-5312

The Office of Victims Advocacy works to ensure crime victims are treated with respect and dignity as their case proceeds through the criminal justice system. https://ag.ky.gov/about/Office-Divisions/OVA/Pages/ default.aspx

Kentucky Protection & Advocacy

5 Millcreek Park, Frankfort, Ky., 40601 (800) 372-2988 / (502) 564-2967

The mission is to protect and promote the rights of Kentuckians with disabilities through legally based individual and systemic advocacy and education. Staff includes professional advocates and attorneys. www.kypa.net

Life Plan of Kentucky, Inc.

230 Lexington Green Circle, Suite 120 Lexington, Ky., 40503 / (859) 523-2323

Life Plan is a pooled special needs trust serving people with disabilities and their families in Kentucky who have countable resources in excess of $2000.00 and need to maintain their eligibility for Supplemental Security Income (SSI) or Medicaid. People can open an account with Life Plan where the funds can be professionally managed, and then requests can be made for expenses that improve the quality of the person’s life. Life Plan provides Trustee services for both individuals with disabilities as well as family members who wish to plan for the future. www.lifeplanofky.org

Nick Wallace, Financial Planner

Northwestern Mutual

330 E. Main St., Suite, 300, Lexington, Ky., 40507 (859) 302-1223 / Nick.Wallace@nm.com

Provides financial planning, life insurance, investments for special needs families to fund special needs trusts and retirement.

www.northwesternmutual.com/financial/advisor/nickwallace

MEDICAL AND THERAPY SERVICE

PROVIDERS

Associates in Pediatric Therapy Louisville Area: (502) 633-1007

Lexington Area: (859) 899-2022

Indiana Area: (812) 542-2771

Bowling Green Area: (270) 467-7700

APT’s unique appeal is that it offers a family approach with multiple pediatric services including

Occupational Therapy, Speech Therapy, Physical Therapy, Developmental Intervention and Audiology to the patient and family in a team approach. APT strives to provide therapy in a variety of locations that are appealing to the patient and family. www.kidtherapy.org

Blue Sprig Pediatrics

Lexington Autism Therapy Center

1035 Strader Drive, Lexington, Ky., 40505 (859) 899-9200

Georgetown Autism Therapy Center 104 Market Path, Georgetown, Ky., 40324 (502) 632-6241

Techniques and procedures are guided by the science of Applied Behavior Analysis by Board Certified Behavior Analysts. / /bluesprigautism.com

Brain Injury Alliance of Kentucky

7321 New La Grange Road, Suite 100 Louisville, Ky., 40222 / (502) 493-0609

BIAK is committed to serving those affected by brain injury through advocacy, education, prevention, outreach, service and support. / www.biak.us

Cardinal Hill Rehabilitation Hospital 2050 Versailles Road, Lexington, Ky., 40504 (859) 254-5701 https://encompasshealth.com/cardinalhillrehab

Cincinnati Children’s Hospital Center for Infants and Children with Special Needs 3333 Burnet Ave., Cincinnati, Ohio, 45229 (513) 636-4200 / TTY (800) 344-2462 www.cincinnatichildrens.org/patients/child/special-needs/ getting-started/about

Early Intervention & Consultation Services, LLC

Locations:

Leitchfield: 635 S. Main St., Leitchfield, Ky., 42754 (270) 287-0656

Radcliff: 363 W. Lincoln Trail Blvd., Radcliff, Ky., 40160 (270) 352-1133

Owensboro: 722 Harvard Drive, Owensboro, Ky., 42301 (270) 240-1842

EICS, founded in 2010, is a pediatric therapy clinic that offers Speech Therapy, Occupational Therapy, Physical Therapy, ABA/Applied Behavior Analysis (for those with autism). EICS also offers mental health counseling and case management. EICS has a licensed psychological associate who provides evaluations for different diagnoses such as autism, dyslexia, learning disabilities and behavioral disorders, etc. EICS also offers Michelle P. Waiver services such as Positive Behavior Supports and Community Living Supports. Please call the location nearest you for more information regarding the services offered at that clinic. / www.eicsky.com

Early Periodic Screening Diagnostic and Treatment Special Services (EPSDT)

Dept. of Medicaid Services, Children’s Health Services 275 E. Main St., 6C-C, Frankfort, Ky., 40621 (800) 635-2570 / TTY (800) 775-0296

(502) 229-0875

The EPSDT Screening Program provides routine physicals or well child check-ups for Medicaid eligible children at certain specified ages. EPSDT can also provide speech/language, physical and/or occupation therapy, and specialized durable medical equipment for children who qualify and need those services. https://chfs.ky.gov/agencies/dms/dpqo/dcmb/Pages/ epsdtspecialservices.aspx

Easter Seals Cardinal Hill

2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7217

Promotes healthy and active lifestyles for people with physical disabilities through education, exposure to adaptive equipment and adaptive recreation experiences in the community. https://cardinalhill.org/about/easter-seals/

Edelson and Associates, PSC

7511 New La Grange Road, Louisville, Ky., 40222 (502) 423-1151

230 Lexington Green Circle, Suite 420, Lexington, Ky., 40503 / (859) 287-0760

Neuropsychological, ADHD, learning disability, autism and psychological disorder evaluations. www.edelsonandassociates.info

Frazier Rehab Institute

UofL Health, 200 Abraham Flexner Way, Louisville, Ky., 40202 / (502) 582-7400 / (502) 587-4011

Known for world-class care in comprehensive acute rehab, Frazier Rehab Institute provides extensive therapy across a number of specialties for inpatient and outpatient rehab needs. https://uoflhealth.org/locations/frazier-rehabilitationinstitute/

HealthPoint Family Care

1401 Madison Ave., Covington, Ky., 41011 (859) 655-6100

HealthPoint Family Care’s vision is a community where everyone has access to quality, affordable health care. The mission is to be the best provider of health services through compassion and innovation. www.healthpointfc.org/location/covington

Heartfelt Solutions

2831 S. Hurstbourne Parkway, Suite A Louisville, Ky., 40220 / (502) 915-8343 www.hfssupportservices.com

Dedicated to improving the quality of life and increasing independence for individuals by providing effective person-centered and evidence-based health services. Those services include adult day training, community living supports, respite, person-centered coaching, supported employment, community access and ABA Therapy for individuals with autism.

Horn and Associates in Rehabilitation

2412 Greatstone Point, Lexington, Ky., 40504 4127 Todds Road, Lexington, Ky. 40509 (859) 224-4081

HRA offers assessments and intervention from a multidisciplinary team including physical therapy, occupational therapy, speech-language pathology, psychology, developmental intervention, social work and case management. HRA provides independent evaluation and intervention services. www.horntherapy.com

Kentucky Children’s Hospital

University of Kentucky, 1000 S. Limestone St., Lexington, Ky., 40536 / (859) 257-1000 / (800) 333-8874

Established in 1957, UK HealthCare consists of the medical, nursing, health sciences, public health, dental and pharmacy patient care activities of the University of Kentucky, and in several off-site locations. https://ukhealthcare.uky.edu/kentucky-childrens-hospital

Kids Center for Pediatric Therapies

982 Eastern Parkway, Louisville, Ky., 40217 (502) 635-6397

9810 Bluegrass Parkway, Louisville, Ky., 40299 (502) 584-9781

Since 1959, the Kids Center for Pediatric Therapies has been helping children with special needs. Each week the Center sees more than 300 children facing challenges such as autism, Down syndrome, spina bifida and cerebral palsy. / www.kidscenterky.org

The Kidz Club

1101 Herr Lane, Louisville, Ky., 40222 (502) 210-5538 / info@thekidzclub.com

Locations:

Bowling Green: 1347 Kentucky Hwy. 185, Suite 2, Bowling Green, Ky., 42101 / (270) 746-0333 Erlanger: 527 Watson Road, Erlanger, Ky., 41018 (859) 727-0700

Lexington: 2200 Regency Road, Lexington Ky., 40503 (859) 224-0799

Louisville: 7140 Preston Highway, Louisville, Ky., 40219 (502) 368-9318

Louisville: 225 N. 25th St., Louisville, Ky., 40212 (502) 365-2426

Louisville:1517 Gagel Ave., Louisville, Ky., 40216 (502) 409-5316

The Kidz Club is a prescribed pediatric extended care facility that provides skilled nursing care for children who are medically fragile in a daycare setting. Kidz Club children range from having highly complex medical conditions to kids who simply need to be monitored or have medication delivered. The Kidz Club provides educational enrichment, therapy follow-through, field trips and activities in a fun social setting. Transportation can be provided. Medicaid and private insurance accepted. There are no costs to children or their family. www.thekidzclub.com

The Kid SpOt Center (Pediatric Therapy)

Locations

Campbellsville: 50 Gene Cash Road, Campbellsville, Ky., 42718 / (270) 465-7748

Elizabethtown: 107 Financial Dr., Elizabethtown, Ky., 42701 /(270) 763-8225

Bowling Green: 980 Morgantown Road, Bowling Green,

Ky., 42104 / (270) 495-1312

Somerset: 200 Tower Circle, Somerset, Ky., 42503 (606) 416-5139

Grayson: 308 Horton Street, Suite B, Grayson, Ky., 41143 / (270) 283-3845

Louisville: 10019 Forest Green Blvd., Louisville, Ky., 40223 / (502) 893-1380

The Kid SpOt Center provides supports to families of children with disabilities. Services include Speech Therapy, Occupational Therapy, Physical Therapy, Positive Behavior Supports, ABA, Mental Health Counseling, Community Living Supports, Social Skills, Targeted Case Management, Medication Management and Neuropsychology Evaluations. / www.thekidspotcenter.com

Kraska & Associates, Inc.

437 Lewis Hargett Circle, Suite 120, Lexington, Ky., 40503 / (859) 219-0956

Private practice providing occupational and speech therapy services. Family-centered approach. Areas of specialty include sensory integration, sensory processing disorder, fine motor/handwriting, dyspraxia, autism, Asperger’s, articulation, phonological disorders and reading programs. / www.kraskaandassociates.com

Marshall Pediatric Therapy

Localidades:

Lexington: 3450 Richmond Road, Suite 130 Lexington, Ky., 40509 / (859) 327-3033

Nicholasville: 109 Wind Haven Drive, Suite 100, Nicholasville, Ky., 40356 / (859) 224-2273

Georgetown: 117 East Jefferson, Georgetown, Ky., 40324 / (502) 316-6180

Richmond: 1013 Center Dr., Richmond, Ky., 40475 (859) 444-5330

Offers occupational and speech therapy for Lexington and surrounding counties. The practice accepts EPSDT, most private insurance plans, participates with Kentucky First Steps, and offers payment plans and provides needbased scholarships from birth to age 21. https://marshallpediatrictherapy.com

Multiple Sclerosis Society

Indiana-Kentucky-Tennessee Chapter 214 Overlook Circle, Suite 153 Brentwood, Tenn., 37027 / (800) 344-4867 https://www.nationalmssociety.org/Chapters/TNS

NorthKey Community Care

Multiple locations in Northern Kentucky (859) 578-3200 / (877) 331-3292

NCC is paving the way to a community that is healthy in mind and spirit in the Cincinnati and Northern Kentucky areas with a comprehensive continuum of mental health, developmental disability and substance abuse care. www.northkey.org/services/developmental-disabilitiesservices

Norton Child Development and Genetic Center

411 E. Chestnut St., Louisville, Ky., 40202 (502) 588-0850

Provides center-based and outreach diagnostic evaluations and treatment to infants and children with, or

at risk for, developmental disabilities, congenital anomalies, genetic disorders, autism, organic behavior disorders (ADHD) and learning disabilities, as well as genetic counseling to adults. http://louisville.edu/medicine/departments/pediatrics/ divisions/developmental-behavioral-genetics

Norton Children’s Hospital

231 E. Chestnut St., Louisville, Ky., 40402 (502) 629-6000

Norton Children’s Hospital is a 253-bed teaching facility and serves as a referral center for central and western Kentucky and southern Indiana. The hospital is also the primary pediatric teaching hospital for the University of Louisville health sciences program. Each year there are approximately 8,000 admissions, 50,000 Emergency Department visits and 10,500 outpatient clinic visits. nortonchildrens.com/location/hospitals/norton-childrenshospital

Passport Health Plan

5100 Commerce Crossings Drive, Louisville, Ky., 40229 (800) 578-0603 / TDD (800) 691-5566

Passport Health Plan is a Medicaid managed care plan that has been coordinating health services to qualified members since 1997. Passport is community-based and provider-sponsored, and the only non-profit Medicaid health plan available to members in Kentucky. The mission is to “improve the health and quality of life of our members,” which Passport follows every day through exceptional customer service, a large provider network, and case and disease management programs. https://chfs.ky.gov/agencies/dms/mac/Documents/ PassportMolinaHealthCare.pdf

Ronald McDonald House Charities of the Bluegrass

1300 Sports Center Drive, Lexington, Ky., 40502 (859) 268-0757

This charity exists to create and support programs that directly improve the health and well-being of children and to strengthen families by keeping them together in times of medical need. / www.rmhclexington.com

Shriners Hospitals for Children

110 Conn Terrace, Lexington, Ky., 40508 (859) 266-2101

Shriners Hospitals for Children has a mission to provide the highest quality care to children with orthopedic or neuromusculoskeletal disorders and diseases within a compassionate, family-centered and collaborative care environment. www.shrinershospitalsforchildren.org/lexington

SKY Pediatric Dentistry

Dr. Mandy Ashley, DMD, MsEd, MS 234 Natchez Trace Ave., Bowling Green, Ky., 42103 (270) 715-5437

Dentistry for children and teens with special needs. www.skypediatricdentistry.com

Square One Specialists in Child and Adolescent Development

6440 Dutchmans Parkway, Louisville, Ky., 40205

(502) 896-2606 / info@squareonemd.com

Comprehensive medical, psychological, psychiatric, educational, and speech-language evaluations are offered to help understand differences that impact children’s and adolescents’ development, behaviors and emotions. www.squareonemd.com

M ENTAL HEALTH PROVIDERS

360 Mental Health Services

1517 Nicholasville Rd., Suite 302, Lexington, Ky., 40515 (859) 948-9471 / tim@360mentalhealth.com

Dr. Tim Houchin is one of only approximately 200 physicians triple-board certified in child/adolescent psychiatry, general psychiatry and forensic psychiatry. He believes in a holistic, 360-degree approach to evaluating and treating both children and adults. www.360mentalhealth.com

Build Inclusion, Inc. P.O. Box 23030, Lexington, Ky., 40523 (859) 221-6689

Build Inclusion promotes intentional inclusion, access, and opportunities through community & family education, engagement, and most of all, meaningful, competitive employment. Build Inclusion facilitates success for individuals in transition to adulthood in preparing for and fully participating in this next stage of their lives. Clinical social work services are also available for the ID/DD population. / www.buildinclusion.org

The Kentucky Association of Regional Programs 3459 Buckhorn Drive, Suite 100, Lexington, Ky., 40503 (859) 272-6700

A state association whose members are 11 of the 14 community mental health centers in Kentucky. KARP can connect citizens to their local community mental health center for information about services and support. www.sites.google.com/site/kentuckycmhcs

Louisville ADHD / Dr. F. Allen Walker

11405 Park Road, Suite 220, Louisville, Ky., 40223 (502) 384-ADHD (2343) / www.louisvilleadhd.com

Mental Health America

MHA is the nation’s leading community-based non-profit dedicated to addressing the needs of those living with mental illness and to promoting the overall mental health of all Americans. The work is driven by a commitment to promote mental health as a critical part of overall wellness, including prevention services for all; early identification and intervention for those at risk; integrated care, services and supports for those who need it; with recovery as the goal.

Regional Offices:

Mental Health America of Kentucky 1588 Leestown Road, Suite 130 #279, Lexington Ky., 40511 / (859) 684-7778 / mhaky@mhaky.org www.mhaky.org

Mental Health America of Northern Kentucky & Southwest Ohio

1002 Monmouth, Newport, Kentucky 41071 (859) 431-1077 / www.mhanky.org

NAMI (National Alliance for the Mentally Ill)

NAMI is the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness. www.nami.org

NAMI Kentucky

201 Mechanic St., Suite 219, Lexington, Ky., 40507 (859) 225-6264 / www.namiky.org

Regional Offices:

Ashland

Dinah Adamson: (606) 782-3261

Philip Bloomer: (606) 371-7123

Carol Murilleo: (606) 356-3181

Jeanne Nolan: (606) 615-4068

Charity Ward: (513) 713-4430

Bourborville

Daniel Essek: (606) 545-2019

Steven Hoeck: (606) 282-3793

Bowling Green

Rebecca Coursey: (270) 772-2779

Buffalo Trace

Sharon Darnell: (606) 584-2716

Dinah Adamson: (606) 782-3261

Butler County

Christy Havens: (270) 999-0633

Deborah Weed & Larry Gregory: (270) 796-2606

Cumberland River

Melony Cunningham: (859) 225-6264

Danville

Kristina Deyo: (859) 608-1728

Susan Rogers: (512) 669-3089

Floyd County

Winnie Hall: (606) 791-3307

Gallatin County

Autsin McQuistion: (513) 706-7093

Green River

Jasmine Cox: (270) 283-2034

Hazard

Nicole Smith: (606) 233-4372

Mary Prater: (606) 253-8039

Heartland

Melony Cunningham: (859) 225-6264

Hopkinsville

Melony Cunningham: (859) 225-6264

Jackson County

Olivia Hays: (606) 344-6090

Jordan Hays: (606) 975-3677

Steven Hoeck: (606) 282-3793

Daniel Esseck: (606) 545-2019

Jessamine County

Venkat Sudharshan: (859) 913-1047

Amberosya King: (859) 272-7891

Lexington

Dr. Fareesh Kanga: (859) 229-7128

Phill Gunning: (859) 272-7891

Julie Caudill: (859) 245-4442

London

Shelia Anglin-Stone: (606) 878-8776

Lila Sweet: (606) 401-7410

Steven Hoeck: (606) 231-6817

Daniel Esseck: (606) 545-2019 / (606) 282-3793

Louisville

Steward Bridgeman: (502) 588-2008

Nancy Brooks: nancy.brooks@namilouisville.org

Rhonda Blandford: (502) 457-6132

Madison County

Myranda McClure: (859) 986-6301

Madisonville

Melony Cunningham: (859) 225-6264

Mayfield

Nicole Champion: (270) 970-7223

Brenda Benson: (270) 748-6133

Montgomery County

Veronica Crump: (859) 398-3710

Morehead

Carol Mauriello: (606) 356-9194

Mountain Region

Mary Prater: (606) 319-3115

Murray

Brenda Benson: (270) 748-6133

Northern Kentucky

Susan Faris: (859) 308-9212

Owensboro

Mindi Peay: (270) 702-6076

Vanessa Roff: (502) 415-3586

Paducah

Jana Wilson: (270) 816-2671

Phyllis Nunn: (270) 519-3414

Nicole Champion: (270) 970-3641

Rachel McCary: (270) 205-0602

Grant McCary: (270) 727-1643

Pike County

Nathan Coleman: (606) 210-0187

Beverly Jones: (270) 635-1492

Jessica Rambo: (276) 614-4522

Scott County

Suzanne Fryman: (859) 221-6879

Nikki Rothwell: (859) 319-9757

Ellen Suter: (859) 200-6642

Somerset

Lisa Hays: (859) 878-6474

Steven Hoeck: (606) 282-3793

Daniel Esseck: (606) 545-2019

Union County

Melony Cunningham: (859) 225-6264

Winchester

Brenda Harrington: (859) 749-3702

Wolfe County

Ghedra Dunn: (606) 362-4962

Mary Prater: (606) 253-8039

NAMI University Locations:

Eastern Kentucky University

Megan Thomas: (606) 922-4285

Steven Hoeck: (606) 282-3793

Daniel Esseck: (606) 545-2019

Kentucky State University

Anthony Passarette: (631) 252-2850

Steven Hoeck: (606) 282-3793

Daniel Esseck: (606) 545-2019

University of Kentucky

Julie Neace: (859) 323-8487

Western Kentucky University

Jana Wilson: (270) 816-2670

New Vista

Regional Office: 1351 Newtown Pike, Lexington, Ky., 40511 / (859) 253-1686 / (859) 272-7483

24-hour help line (800) 928-8000

New Vista serves children and adults in 17 Central Kentucky counties with services in mental health, substance use and intellectual and developmental disabilities. Individuals and families receive services at the location nearest to them. New Vista has four anchor centers providing a full range of services in Boyle, Fayette, Madison and Scott Counties. The anchor centers are surrounded by satellite offices in neighboring counties. newvista.org

MISCELLANEOUS

Alter UR Ego

P.O. Box 56, Farmers, Ky., 40319 / hello@alterurego.co

Adaptable clothing for people in wheelchairs to be fashionable and functional. For kids, teens and plus sizes. www.alterurego.co

NuMotion

Bowling Green

1960 Louisville Road, Suite 3A, Bowling Green, Ky., 42101 / (270) 904-4934

Lexington 973 Beasley St., Suite 110, Lexington, Ky., 40509 (859) 225-3624

Louisville

11380 Bluegrass Parkway, Jeffersontown, Ky., 40299 (502) 266-9061

With a strong local focus, NuMotion aims to be the most responsive and innovative complex wheelchair company with which to do business. www.numotion.com

Superior Van & Mobility

761 E. New Circle Road, Lexington, Ky., 40505 (859) 253-1832

1506 Lakeshore Court, Louisville, Ky., 40223 (502) 447-8267

Superior Van & Mobility provides mobility solutions for the consumer and commercial transportation industry. Member of the National Mobility Equipment Dealers Association and a participant in NMEDAs Quality Assurance Program, which is recognition reserved for the highest quality mobility dealers. www.superiorvan.com

SCHOOLS

Academy for Individual Excellence

3101 Bluebird Lane, Louisville, Ky., 40299

(502) 267-6187 / awroblewski@Aiexcellence.com www.aiexcellence.com

Child Development Center of the Bluegrass

290 Alumni Drive, Lexington, Ky., 40503 (859) 218-2322

Five-Star rated preschool for children with and without disabilities. Services provided include assessment, evaluations, and speech, physical and occupational therapy. / www.cdcbg.org

Christian Academy of Louisville/Providence School

700 S. English Station Road, Louisville, Ky., 40245 (502) 244-3225 ext 1020

Mindy Crawford: (502) 244-3225 ext. 1020

CAL/Providence School serves children preschool through 8th grade with Down syndrome within an inclusive environment to promote language, social and spiritual goals. Students also receive small-group instruction to address individual goals. Curriculum and structure are designed to promote spiritual, cognitive, adaptive, language, motor and self-help skills. A Family Service Plan/IFSP is written with each family specific to the needs of their child. The school works in relationship with Down Syndrome of Louisville. The school is adding a new grade each school year. Providence will serve K-12 by the 2025-2026 school year. www.caschools.us/down-syndrome-providence-school

The dePaul School

1925 Duker Ave., Louisville, Ky., 40205 (502) 459-6131

Teaching students with learning differences how to learn, how to become independent, and how to become successful. / www.depaulschool.org

Growing Together Preschool, Inc. 599 Lima Drive, Lexington, Ky., 40511 (859) 255-4056

Has offered nurturing early child care and education services to children with and without disabilities and other special needs in an inclusive environment since 1982. Additional services include developmental screenings and assessment; behavior consultations; and physical, occupational and speech therapy. Teachers have experience working with children of varying abilities and advantages, and integrating recommended therapeutic practices into the classroom. GTP is accredited by the National Association for the Education of Young Children, rated 5 STARS through KY ALL STARS and offers a Kentucky Proud farm to preschool menu. www.gtplex.org

The Kidz Club

1101 Herr Lane, Louisville, Ky., 40222 (502) 210-5538 / info@thekidzclub.com

Locations:

Bowling Green: 1347 Ky. Hwy. 185, Suite 2 Bowling Green, Ky., 42101 / (270) 746-0333

Erlanger: 527 Watson Road, Erlanger, Ky., 41018 (859) 727-0700

Lexington: 2200 Regency Road, Lexington Ky., 40503 (859) 224-0799

Louisville: 1517 Gagel Ave., Louisville, Ky., 40216

(502) 409-5316

Louisville: 225 N. 25th St., Louisville, Ky., 40212 (502) 365-2426

Louisville: 7140 Preston Highway, Louisville, Ky., 40219 (502) 368-9318

The Kidz Club is a prescribed pediatric extended care facility that provides skilled nursing care for children who are medically fragile in a day care setting. Kidz Club children range from having highly complex medical conditions to kids that simply need to be monitored or have medication delivered. The Kidz Club provides educational enrichment, therapy follow-through, field trips and activities in a fun, social setting. Transportation can be provided. Medicaid and private insurance accepted. There are no costs to the child or their family. www.thekidzclub.com

KORE Academy

Tates Creek Christian Church, 3150 Tates Creek Road, Lexington, Ky., 40502

School for children with learning differences for grades K-12. www.koreacademy.org

Langsford Learning Acceleration Centers

9402 Towne Square Ave., Cincinnati, Ohio, 45242 (513) 531-7400 / jeff@langsfordcenter.com 2520 Bardstown Road, Louisville, Ky., 40205 (502) 473-7000

The Langsford difference – what separates the program from traditional “tutoring” programs – is that at Langsford professionals determine and address the underlying learning processes that cause learning difficulties. Langsford helps people of all ages who are doing well in school but exerting disproportional effort, as well as those who have been considered learning disabled or dyslexic. www.langsfordcenter.com

The Lexington School’s The Learning Center 1050 Lane Allen Road, Lexington, Ky., 40504 (859) 278-0501 / shinard@thelexingtonschool.org

The Learning Center provides a unique and essential service to children with language-based differences by offering an alternative to traditional classrooms. By creating a teaching environment that eliminates the major obstacles to learning, students are able to close the gap between achievement and their potential. Teacher-student ratios of 1:4 allow for individualized instruction in the core areas of greatest need. In addition, low student-teacher ratios will be maintained in other subjects such as science, social studies, computer skills, specials and social skills. www.thelexingtonschool.org/the-learning-center

Meredith-Dunn School

3023 Melbourne Avenue, Louisville, Ky., 40220 (502) 456-5819 / dcrowe@meredithdunnschool.org

Serving families in the Louisville Metro area for over 50 years. Offering prescriptive, multi-sensory instruction for children with learning differences. www.meredithdunnschool.org

The Provisions School & Family Counseling Center

301 Harvard Drive, Lexington, Ky., 40517 (859) 396-0644

The Provision School is a faith-based, non-profit, therapeutic learning environment that encompasses the benefits of counseling services and individualized education for students of varying needs and abilities. www.theprovision.org

Sproutlings Pediatric Day Care & Preschool

Kosair Charities Center

3701 Frankfort Ave., Louisville, Ky., 40041

Located on the Masonic Homes Kentucky campus (502) 753-8222

Sproutlings is a dual-licensed program and has spaces for medically fragile children and children in traditional day care or preschool. Staffed by Registered Nurses, Certified Nursing Assistants, teachers and teacher aides, and caring for a wide variety of medical conditions. Medicaid and private insurance are accepted. www.SproutlingsDayCare.com

Stewart Home School

4200 Lawrenceburg Road, Frankfort, Ky., 40601 (502) 227-4821

Discover a residential school that offers lifelong learning, a postsecondary experience, the opportunity to attain a GED, vocational training and countless social and recreational activities among friends from all around the world.

www.stewarthome.com

Summit Academy of Louisville

11508 Main St., Louisville, Ky., 40243 (502) 244-7090 / dstrothman@summit-academy.org

Summit Academy is an independent, non-profit K-12 school in Louisville. Summit Academy provides a transformative educational experience for students who learn differently by cultivating each student’s academic, social and emotional success in a vibrant and compassionate environment. Summit provides a place where each student’s learning challenges are understood and met using a whole child approach; a place where the school celebrates and develops children’s strengths, as well as addressing their area of difficulty. It’s a safe place where each young learner is treated and educated as an individual – in an atmosphere of caring and respect that allows students to succeed. / www.summit-academy.org

SERVICE DOGS

Paws With Purpose

P.O. Box 5458, Louisville, Ky., 40255 (502) 689-0804 / Info@PawsWithPurpose.org pawswithpurpose.org

Wildcat Service Dogs University of Kentucky

210 E. High St., P.O. Box 612, Lexington, Ky., 40507 wildcatservicedogs@gmail.com https://uky.campuslabs.com/engage/organization/ wildcatservicedogs

SERVICE PROVIDERS (COMMUNITY AND RESIDENTIAL)

For a complete list of Service Providers licensed in Kentucky please see: https://providerdirectory.dbhdid.ky.gov/

BrightSpring Health Services

805 N. Whittington Pkwy, Louisville, Ky., 40222 (800) 866-0860 / (502) 394-2100

Provider of comprehensive home and communitybased health services to complex populations in need of specialized care. www.brightspringhealth.com

Cedar Lake

9505 Williamsburg Plaza, Suite 200 Louisville, Ky., 40222 / (502) 495-4946

Cedar Lake is committed to providing the highest quality of services to the people it supports. To demonstrate its commitment to the development of a compassionate and capable workforce, Cedar Lake has launched a career development program with ongoing educational opportunities to further sharpen people’s skills. In doing so, Cedar Lake employees develop a heightened sensitivity – or compassion – for the people they support and a clear understanding of how they can best support these individuals to live a life filled with abundant possibilities. www.cedarlake.org

Mattingly Edge

1930 Bishop Lane, Suite 1001, Louisville, Ky., 40218 (502) 451-6200

Mattingly Edge cultivates partnerships that enable people with disabilities to thrive at work, at home, and in relationships. The mission is based on the belief that people with disabilities have the right to the same privileges and responsibilities as other citizens. Communities are better when everyone is included. “Real Jobs. Real Homes. Real Friends. Real Lives.” www.mattinglyedge.org

New Perceptions

1 Sperti Drive, Edgewood, Ky., 41017 (859) 344-9322

Non-profit organization has been dedicated to enriching lives of those with intellectual/developmental disabilities since 1952. newperceptions.org

New Vista

Regional Office: 1351 Newtown Pike Lexington, Ky., 40511 (859) 253-1686 / (859) 272-7483 24-hour help line (800) 928-8000

New Vista serves children and adults in 17 Central Kentucky counties with services in mental health, substance use and intellectual and developmental disabilities. Individuals and families receive services at

the location nearest to them. New Vista has four anchor centers providing a full range of services in Boyle, Fayette, Madison and Scott Counties. The anchor centers are surrounded by satellite offices in neighboring counties. newvista.org

Options Unlimited Inc.

205 Castlerock Drive, Shepherdsville, Ky., 40165 (502) 955-7271 / t.carr@optionsunlimitedinc.org

Changing lives by helping people with disabilities become as independent as possible. Services include supported employment, school transitions program/PreETS, TLC training program at UPS, adult day program, deaf & hard of hearing. Serving Bullitt, Shelby, Spencer and Jefferson counties. www.optionsunlimitedinc.org

Pathways

P.O. Box 790, Ashland, Ky., 41105 (606) 324-1141 / (800) 562-8909

Pathways assists in obtaining individual and familydetermined supports for persons who have developmental disabilities or intellectual disabilities. Goals are to serve and enhance opportunities for making choices that promote inclusion as a valued citizen in all meaningful phases of community life. www.pathways-ky.org

R.E.A.C.H of Louisville

501 Park Ave., Louisville, Ky., 40208 (502) 585-1911

REACH provides an exemplary SCL program with support for individuals and families through highly qualified support staff, which includes psychologists, social workers, crisis support managers, recreational specialists and special educators. www.reachoflouisville.com

Redwood Rehabilitation Center

71 Orphanage Road, Ft. Mitchell, Ky., 41017 (859) 331-0880

A non-profit organization funded by United Way, Redwood guides children and adults with multiple and severe disabilities to achieve independence and to reach their highest potential throughout their lives, by providing enriching educational, therapeutic and vocational services. www.redwoodnky.org

STRIDE

150 Maryland Ave., Winchester, Ky., 40391 (859) 744-0370

STRIDE serves individuals who have a learning or developmental disability and are at least 16 years of age. Daily programming includes cooking classes, dances, Special Olympic activities, daily living skills classes and much more in an effort to improve the quality of life for participants. All participants are expected to live up to their responsibilities at home, work and in the STRIDE program. Motto: “We have an obligation to expect the best out of our participants and try to help them to continue to improve their skills.” / www.strideky.org

Zoom Group 1904 Embassy Square Blvd., Louisville, Ky., 40299

(502) 581-0658

Zoom Group has been providing supports for individuals with disabilities for over 30 years. Zoom Group’s mission is to “EMPOWER, EDUCATE AND EMPLOY” people of all abilities. www.zoomgroup.org

SPEECH, LANGUAGE AND HEARING

Heuser Hearing Institute

117 E. Kentucky St., Louisville, Ky., 40203 (502) 584-3573

Heuser Hearing Institute (HHI) is a multi-specialty nonprofit campus promoting the needs of children and adults with disorders of hearing and balance. The organization has served Louisville and many of the surrounding Kentucky and Indiana communities since 1948. www.thehearinginstitute.org

Kentucky School for the Deaf 303 South Second St., Danville, Ky., 40423 (859) 239-7017

Ensures that children and youth who are deaf or hard of hearing have educational opportunities to develop their potential to become educated, life-long learners and productive citizens. www.ksd.k12.ky.us

Kentucky Commission on the Deaf and Hard of Hearing 632 Versailles Road, Frankfort, Ky., 40601 (800) 372-2907 / kcdhh@mail.state.ky.us www.kcdhh.ky.gov/

Kentucky Hands & Voices

P.O. Box 43914, Louisville, Ky., 40253 (888) 398-5030 / info@kyhandsandvoices.org

Hands & Voices is a non-profit, parent-driven national organization dedicated to supporting families of children who are deaf or hard of hearing. The organization is non-biased about communication methodologies and believes that families can make the best choices for their child if they have access to good information and support. The group consists of parents of ASL signers, cued speech users, kids with cochlear implants and total communicators. www.kyhandsandvoices.org

Kentucky Speech-Language-Hearing Association 838 E. High St., Suite 263, Lexington, Ky., 40502 (800) 837-2446 / khsaoffice@khsa.info

The mission is to enhance the provision of quality services to persons with communication disorders and their families. KSHA provides broad-based education opportunities, public awareness and policy development initiatives, and supports professionals in speech-language pathology and audiology by promoting the highest standards for service providers. www.ksha.info

Lexington Hearing and Speech Center

350 Henry Clay Blvd., Lexington, Ky., 40502 (859) 268-4545

Provides diagnostic, therapeutic and educational services for individuals with hearing, speech and language impairments. / https://hscky.org

St. Rita School for the Deaf

1720 Glendale Milford Road, Cincinnati, Ohio, 45215 (513) 771-7600 / www.srsdeaf.org

SPINA BIFIDA

Cardinal Hill Center for Outpatient Services

2050 Versailles Road, Lexington, Ky., 40504 (859) 254-5701

https://encompasshealth.com/locations/cardinalhillrehab

Kids Center for Pediatric Therapies

982 Eastern Parkway, Louisville, Ky., 40217 (502) 635-6397

9810 Bluegrass Parkway, Louisville, Ky., 40299 (502) 584-9781

Since 1959, the Kids Center for Pediatric Therapies has been helping children with special needs. Each week the Center sees more than 300 children facing challenges such as autism, Down syndrome, spina bifida and cerebral palsy.

www.kidscenterky.org

Spina Bifida Association of Kentucky

Kosair Charities, 982 Eastern Parkway, Suite 18 Louisville, Ky., 40217 (502) 637-7363 / sbak@sbak.org

The Spina Bifida Association of Kentucky is a resource center for children, their families and adults affected by Spina Bifida. SBAK educates parents how to be the best advocate for their child, and helps children and adults overcome physical, cognitive and social challenges to become successful and independent. The mission is to promote the prevention of Spina Bifida and enhance the lives of all those affected. www.sbak.org

Shriners Hospital for Children

110 Conn Terrace, Lexington, Ky., 40508 (859) 266-2101

Shriners Hospitals for Children has a mission to provide the highest quality care to children with orthopedic or neuromusculoskeletal disorders and diseases within a compassionate, family-centered and collaborative care environment.

www.shrinershospitalsforchildren.org/lexington

VISION

(859) 422-6390 / (800) 238-5193 ext. 1010 info@radioeye.org Eastern Kentucky: (606) 233-1330 sharon.cornett@radioeye.org

Radio Eye broadcasts the reading of current news, public service and general interest programming to listeners and others who are blind and print-disabled. Radio Eye, which serves Lexington, Louisville and parts of Eastern Kentucky, strives to produce high-quality programming designed to help the listening audience lead enriched, productive and independent lives. www.radioeye.org

Cincinnati Association for the Blind

2045 Gilbert Ave., Cincinnati, Ohio, 45202 (513) 221-8558 / info@cincyblind.org

Cincinnati Association for the Blind and Visually Impaired (CABVI) is a private, non-profit organization offering comprehensive vision rehabilitation services for people of all ages who are blind or visually impaired. cincyblind.org/about

Clovernook Center for the Blind/Visually Impaired 7000 Hamilton Avenue, Cincinnati, Ohio 45231 (513) 522-3860 / fd@clovernook.org

Clovernook has proudly served women, men and children for more than 100 years. This rich history provides the backdrop for today’s progressive and caring campus-like environment where the Center remains dedicated to adults and youth who are blind or visually impaired. clovernook.org

Children’s Vision and Learning Center

105 Crossfield Drive, Versailles, Ky., 40383 (859) 879-0089

In addition to general optometric services, Family Eyecare offers unique programs such as Vision Therapy for children experiencing difficulty with reading and/or underachievement at school. Children in these programs average more than a 3-year improvement in performance in 10 to 15 weeks. www.visiontherapykentucky.com

Kentucky Office for the Blind Mayo-Underwood Building 500 Mero St., 4th Floor NE, Frankfort, Ky., 40601 (502) 564-4440 / (800) 372-7172

https://kcc.ky.gov/Vocational-Rehabilitation/Blind%20 Services/Pages/Blind-Services-Division.aspx

Kentucky School for the Blind

Division of the Kentucky Department of Education Office of Special Instructional Services

1867 Frankfort Ave., Louisville, Ky., 40206 (502) 897-1583

A K-12 public school serving Kentucky students who are blind and visually impaired. The school offers a Short Course program (1-12 weeks) of specialized instruction available to students throughout the school year. Summer school programs are offered in June and July. https://www.ksb.kyschools.us

Kentucky School for the Blind Outreach Services

Available Statewide

1867 Frankfort Ave., Louisville, Ky., 40206 (502) 897-1583 ext. 7714

Outreach works in partnership with the Educational Cooperatives to facilitate expansion of regional services. KSB Outreach Consultants are assigned to each of the Educational Cooperatives as points of contact for services and programs offered by KSB. The Director of Special Education within local school districts may make referrals for services to the assigned KSB Outreach Consultant for their cooperative or by contacting KSB Director of Outreach. The Outreach department supports proficient student performance by assisting local school districts, including KSB and the Kentucky School for the Deaf, in reducing barriers to learning associated with a vision loss. It also provides students access to the general curriculum, the Kentucky Core Academic Standards, and Expanded Core Curriculum for Students with Visual Impairments. www.ksb.kyschools.us/Content/36

Silver Circles, Inc.

2396 New Shepherdsville Road, Bardstown, Ky., 40004 (859) 489-7773 / (812) 273-6986 www.silvercirclesinc.com

Catherine C. Barnes, Director & Irlen Diagnostician

The Irlen Method uses colored overlays and precision tinted filters, worn as glasses, to reduce or eliminate perceptual difficulties and light sensitivity.

Visually Impaired Preschool Services (VIPS)

Greater Louisville

Radio Eye

1733 Russell Cave Road, Lexington, Ky., 40505

The Kentucky Office for the Blind consolidated services in October 2018 with the Kentucky Office of Vocational Rehabilitation. The mission of the Kentucky Office of Vocational Rehabilitation/Blind Services Division is to provide opportunities for employment and independence to individuals with visual disabilities. The Division serves Kentuckians who are visually impaired or blind and assists individuals in obtaining and maintaining employment, economic self-sufficiency and independence with complete integration into society. The Blind Services Section provides statewide services to all 120 counties and has 10 field offices located throughout Kentucky in Ashland, Bowling Green, Covington, Elizabethtown, Lexington, Louisville, Owensboro, Paducah, Prestonsburg and Somerset.

1906 Goldsmith Lane, Louisville, Ky., 40218 (888) 636-8477

Central Kentucky 350 Henry Clay Blvd., Lexington, Ky., 40502 (859) 276-0335 / (888) 254-8477

The mission of Visually Impaired Preschool Services is to offer appropriate services to infants, toddlers and preschoolers who are visually impaired or blind and to their families; and to maximize each child’s development potential through direct services, advocacy and community education. VIPS staff includes certified teachers who specialize in early childhood education, visual impairment, O&M, and special education. Several staff members are also parents of visually impaired children. www.vips.org n