Exceptional Family 2014

Exceptional

2014-2015

FREE Commonwealth Council on Developmental Disabilities

choice & control of your life.

Hillary Smith and her daughter Zoe, 3, of Versailles share a close moment.

Photo by Robin Allen Photography

314 Statewide

Resource Listings A Speciality Publication of

Family Ky2014-15 Exceptional

“All Kentuckians Have

Equal Opportunity

To Choice & Control In Their Lives.”

Mission of The Commonwealth Council on Developmental Disabilities

on the cover Hillary Smith of Versailles is flanked by her two daughters, Zoe, left, and Faith, right. Zoe attends The Kidz Club in Lexington.

Editor..........................John Lynch of Lexington Family Magazine

Graphic Artist.......Daniel Morgan

of Lexington Family Magazine 2

www.lexingtonfamily.com

features 4 10 12 16 20 22 24 28 30 32

Letter from the CCDD A message from Chairperson Joe Cowan Community of Sharing CCDD project emphasizes community assets Tireless Support Colin McKiernan’s paintings show his personality Following His Dream...

SHEP program assists Will Lyon in college Insulin Injections in School?

Students with diabetes may get help Making It Work Help for Personal Care Home residents It’s The Law Federal school statute aids Philip Thomas 360 View of Autism Husband-wife team offers answers Movin’ On Up 5-year-old thrives at The Kidz Club Resource Directory 314 resources across the state

2014-2015 “Exceptional Family Ky” is published by Lexington Family Magazine, Central Kentucky’s parenting publication.

138 E. Reynolds Rd. # 201 • Lexington, Kentucky 40517 (859) 223-1765 • www.lexingtonfamily.com • info@lexingtonfamily.com

Care Agency, Inc. h t l a e H e m o H al n o i s s e e h r f T a c p i r y t a i d e Pro P l l a h s r a &M Offering a Full Array of Home Health Services for Adults & Children Over 100 Years Combined Experience We care for children in light of the truth that “Children are a gift from The Lord...� (Psalm 127:3)

PHHCA has assembled a multi-disciplinary team of health care professionals with the skills and knowledge needed to provide outcomes that matter. Additionally, we have collaborated with Marshall Pediatric Therapy to augment our pediatric program with specialized pediatric therapists. This multi-disciplinary approach is the cornerstone of fulfilling our mission: to help each on of our clients to believe in their own innate worth as well as to help each one mazimize their own potential.

Nurses, therapists and other staff work with your child and your family to create the care and the therapy results that matter to you. Parents are taught specific strategies to help their child reach goals & achieve development milestones.

141 Prosperous Place, Ste. 24 Lexington, KY 40509 www.phhca.com | www.mptcares.com | 859.543.0408 2014-2015 Exceptional Family KY

3

Letter from the

C C DD

Joe Cowan

Chair of Council Affairs

The mission of the CCDD is to empower

individuals to achieve full citizenship and inclusion in the community through education, capacity building and advocacy.

I am Joe Cowan, the current chair of the Commonwealth Council on Developmental Disabilities.

My profession is Instructional Specialist and Disability Services Worker at Somerset Community College.

I became a disability advocate about 10 years ago.

I was born with Arthrogryposis and use a motorized wheelchair so it has been necessary for me to advocate for myself throughout my life.

Needless to say, there have been many disability barriers for me to overcome.

Not only are we continually met with attitudinal challenges, but there are still many physical barriers to overcome.

As chair of the Council, I feel that this position should afford me the opportunity to keep our mission in view.

Our mission is supporting, empowering and advocating for individuals with disabilities.

In Kentucky, more than 23% of the population consists of individuals who are physically or 4

www.lexingtonfamily.com

cognitively challenged.

Therefore, the Council must continue encouraging individuals to reach their full potential.

There are many obstacles we have yet to overcome such as housing, employment, recreation, and the lack of accessible transportation in rural areas such as ours.

The main objective of the Commonwealth Council on Development Disabilities is to encourage board members, families and volunteers to become selfadvocates and to get involved in worthwhile causes that affect individuals with disabilities.

Council members are placed on a committee of choice where we participate in the function of the Council by trying to make a difference for our population.

Some of those committees include Executive Committee, Council Affairs Committee, Finance Committee and Public Policy Committee.

We encourage individuals with developmental disabilities to get involved in housing issues, employment, education, recreation

and Kentucky’s policy-making issues.

Individuals with developmental disabilities and their families are encouraged to join us in our venture to become valued citizens. t

how to

become a CCDD member An individual who has a developmental disability and/or a family member or guardian of an individual with a developmental disability may apply to be on the Commonwealth Council on Developmental Disabilities.

Council members are expected to attend regularly scheduled quarterly meetings that last two to three days.

A member serves a threeyear term and is limited to six consecutive years of service.

Info: http://chfs.ky.gov/ccdd or 1-877-367-5332.

recreation is for

EVERYONE In 2009, the Commonwealth Council on Developmental Disabilities began the Recreation Involvement Fund. This fund was established for individuals with developmental disabilities to attend community gyms, such as the YMCA, and enroll in sporting activities like swimming or baseball.

Along with the obvious health benefits, it is the Council’s hope that people using the fund also begin to integrate themselves into the community by forming new bonds with people that they would not otherwise have met. It is also the Council’s hope that non-disabled individuals who may not ordinarily be exposed to people with developmental disabilities will discover that “these people” are not unlike themselves.

To apply for the

RECREATION INVOLVEMENT FUND Please visit our website

chfs.ky.gov/ccdd 2014-2015 Exceptional Family KY

5

Meet the CCDD...

Marie Braun, Joe Cowan, Jeff Edwards, Oyo Fummilayo, Christel Hockensmith, Keith Hosey, Tina Jackson, Claudia Johnson, Harold Kleinert, Missy McKiernan, Debi McMurray, David Minor, Dina Nelson, Colleen Payne, Margaret Reed, Chastity Ross, Sherry Sanders, Julia Steinman, Janelle Turner, Ann Weaver, Ashley Wink, Eric Wright

The mission of the Commonwealth Council on Developmental Disabilities is to create change through visionary leadership and advocacy Not pictured: Evan Charles, Lynne Flynn, Melissa so that people have choices and control over their own lives.

Hardison, Erin Hopper In 2001, the council began operating under a new five-year plan based on nine areas of emphasis outlined by the Developmental Disabilities Assistance Act. These areas of emphasis are used to fulfill the purpose and intent of the DDA and the mission and vision of the council.

Beginning in 2011, the council began operating under a new name, the Commonwealth Council on Developmental Disabilities, to better reflect its role in the commonwealth.

6

www.lexingtonfamily.com

CCDD LEADERSHIP DEVELOPMENT FUND The Commonwealth Council on Developmental Disabilities (CCDD) has a reimbursement grant available for financial assistance for individuals with developmental disabilities and their close support network to participate in both in and out-of-state leadership development opportunities. The purpose of the fund is to empower individuals to achieve full citizenship and inclusion in their community through education, capacity building and advocacy.

You may apply for assistance to attend conferences or educational programs or advocacy by making a written request along with a completed application.

Include the conference brochure, dates, and location, along with the amount you are paying and the amount of your request. Enclose a copy of the conference brochure. *Council travel policy complies with Kentucky State Travel Regulations.

Who Can Apply to the Leadership Development Fund?

The Leadership Development Fund is designed to assist persons with disabilities, their family members, and their guardians.

In order to receive money from the Leadership Development Fund, an applicant must be: • A person with a disability; • An immediate family member of a person with a disability (parent, sibling or child); or • The guardian for a person with a disability.

You may visit our website www.ccdd.ky.gov to print an application or contact our office using the information below to have one mailed to you.

If you need assistance developing a request, or if you would like further information, please contact the CCDD office (502) 564-7842 or toll free at 1-877367-5332.

2014-2015 Exceptional Family KY

7

Small Package, Big Voice

After Article in Exceptional Family, Marlana Receives Special Bike

C

women’s basketball games with her hristmas came on wheels this voice last year, Marlana went viral on year for 18-year-old Marlana YouTube.

VanHoose, profiled last year in And she hasn’t stopped there.

Exceptional Family Magazine.

After a story on her ran in the 2013 Marlana was born with Exceptional Family Magazine, Marlana Cytomegalovirus, has mild cerebral was profiled on CBS News. palsy, is blind and has dazzled She has since sung the national Kentucky with her larger-than-life anthem at three UK women’s singing voice. basketball and the UK men’s alumni Under the tag “Small Package, Huge basketball games.

Voice Needs a Bike,” the Rush-Miller Her most recent performance was Foundation in Colorado raised money at the Capitol for the annual 874K and sent Marlana a tandem bike on Coalition Rally, where she sang Dec. 23, just in time for the holidays. the National Anthem and “My Old Rush-Miller Foundation donates Kentucky Home” in the Legislature tandem bicycles to blind and low vision and received an encore after singing children. The committee usually fields “America the Beautiful” in the Rotunda. referrals for bikes but found and chose Marlana will perform this year’s3:19 Marlana as a recipient.

1025OpenHouse-FamilyMag 3.7x5:1011OpenHouse-FamilyMag 3.7x5 at 12/14/11 Miss Illinois pageant, on KET for Tim Since gracing the crowds at UK

PM

Farmer’s “Homemade Jam” series and in Marlana VanHoose with the Louisville UK women’s basketball team. with the Kentucky All-State Choir.

Marlana, who will graduate from Johnson Central High this year, receives calls from churches across the state asking her to sing.

And the girl with the big voice has even bigger dreams – she hopes to travel around and sing more, even with a packed calendar.

Three words for Marlana: you go girl.

Marlana Page 1 info at www.littlemarlana. com. t

A program to meet your child’s special needs at

ENJOY EACH MILESTONE OF YOUR LIFE Have you searched for just the right place to celebrate with family, friends and associates?

Tour our facility to see why you should reserve your next special occasion at Lexington’s newest reception center.

Birthdays Christenings Mitzvahs

Family gatherings Retirement parties Class reunions

Receptions Showers Business meetings

CC

CELEBRATION CENTER O F L E X I N G T O N 1509 Trent Boulevard I Lexington, KY 40515 p 859.272.3414 f 859.272.3417 www.celebrationcenteroflexington.com © 2011 BAKER COMMUNICATIONS 0121-1025

8

www.lexingtonfamily.com

• One-on-one gymnastics and dance lessons • Small group gymnastics and dance class • Aid/assistant program For more information contact

legacycarouselkidz@gmail.com

Legacy Gymnastics, (859) 977-8862 Cheer and Dance 261 Ruccio Way Lexington

www.legacyallsports.com

ALL Kentuckians Have Equal Opportunity To Choice & Control In Their Lives

Commonwealth Council on Developmental Disabilities 100 Fair Oaks Lane, 4E-F Frankfort, KY 40601 877.367.5332 • 502.564.7841 • http://chfs.ky.gov/ccdd

This council is Governor appointed. To apply please visit http://chfs.ky.gov/public/boards/ or contact our office for an application.

2014-2015 Exceptional Family KY

9

o f y t i S n h u a m r i n m g o C CCDD Launches Plan to Promote Inclusion

By Building on Community Talents and Interests

By Tina Jackson Will Jervis, left, stands next to his Pontiac Fiero, part of a Classic Car effort in Westwood. Music rules in Lawrence where Garrett Roberts, the Sheriff of Lawrence County, plays guitar, and James Ellis, the Director of Adult Education in the county, plays bass guitar.

T

ry to imagine that where you live is a place where everyone is valued and respected. Imagine that people are interested in you and the special gifts that you could share with the community.

Imagine that your community welcomes all people regardless of their differences because not only is it right but because with every unique person there is a new gift or talent added to the community.

This is the goal that the Commonwealth Council on Developmental Disabilities in Kentucky is working to accomplish.

The Council is taking the first steps to initiate a community enrichment plan called “Community of Sharing.�

The plan will help communities in Kentucky not only be more inclusive but allow all citizens to become actively involved in what happens where they live.

The plan uses the principles of Asset Based Community Development.

10

www.lexingtonfamily.com

Rather than focusing on problems and needs, ABCD engages with community members to identify and celebrate individual and community talents, skills and assets involving citizens with and without disabilities.

The goal is to improve the community through people and community-centered supports by actively listening to everyone, learning what the area has to offer and working toward common goals for the betterment of all.

The effort does not focus on just the disabled but by making an effort to include everyone, it will be wholly inclusive.

T

he Council has chosen two areas in Eastern Kentucky to initiate this plan and selected two council members from each area to oversee the project.

The two areas are Lawrence County, a rural setting, and Westwood near Ashland, a more urban setting.

Tina Jackson was selected to initiate the plan in Lawrence County and David Minor in Westwood.

Each area selected will develop different-looking models because the initiative encourages the input of local people.

The first step is to listen to community members and learn what they want to do to improve their community.

As people express their wants and realize what the talents are within their own community, it gives them the strength and desire to work together.

This work strengthens relationships and creates a strong will to realize the common goal. Communitycentered resources give citizens a real investment in the work.

The effort in Lawrence County and Westwood is just beginning, but it has become obvious that people are eager to embrace the process and start the work.

Community of Sharing

Five part-time “community builders” have been hired to start the development of community plans.

Several wants already have been uncovered. In Westwood, there is a communal interest in classic cars and the rebuilding of old cars.

This could be developed into the creation of a classic car club that would allow older members of the community to act as teachers and mentors to those with the same interest.

Another interest is to create a community garden so that everyone can claim a parcel of land.

Here again is an opportunity to share the knowledge of gardening and meet other community members.

I

n Lawrence County, music is a strong interest, and many citizens play instruments.

This has shaped an idea to create a summer music camp for musicians to

art.

“This project epitomizes the work of the Council – to create change through innovation and to develop communities where everyone belongs,” CCDD Executive Director Pat Seybold said.

“Council members Tina Jackson.

David Minor and Donna Kouns are to be given credit for their dedication to this project. Without their time, energy and effort, this project would not have become a reality.

“They have truly demonstrated what can happen when a small group of people make a commitment to change a community.” t

gather and learn from one another and invite guest musicians to come and share their talents.

The camp would also expose children to talents within the community for possible mentorship opportunities.

Another area of interest in Lawrence County is learning the skills of canning, knitting and sewing.

More people are depending on gardens to feed their families and need to know how to can their harvest.

This is an opportunity to include the generation of folks who have the skills and teach those who do not. Classes are being created to teach the skills that seem to be going the way of a lost

Tina Jackson was born with cerebral palsy and had a stroke, which resulted in the loss of her speech, at age 24. She is a member of the Commonwealth Council on Developmental Disabilities working on disability issues.

Tina owns Jackson Peg Tube Stands, and she and husband Mark live in Louisa.

opportunity, recovery, growth...

we help people get there

Providing behavioral health, intellectual & developmental disabilities, and substance abuse services to the citizens of Central Kentucky for over 45 years.

24-Hour Crisis Line: 1-800-928-8000 2014-2015 Exceptional Family KY

11

Tireless Support

By Missy R. McKiernan

Beset by Seizures, Colin Finds His Way With the Help of His Family’s Tenacity

W

Missy R. McKiernan with her sons, Colin, 32, and Bryan, 29

hen my son Colin McKiernan was born in 1981, I began checking off all of his milestones in his baby book.

Shortly before his first birthday, he began to have infantile spasms. He was diagnosed with Tuberous Sclerosis Complex (TSC), a then rare neurological disorder that causes uncontrollable seizures, intellectual disability and autism.

It was the beginning of our roller coaster journey into the world of TSC. 12

www.lexingtonfamily.com

Colin met motor milestones of sitting, crawling, walking and talking by the age of 18 months.

Initially with therapy, Colin’s progress was encouraging and he was only mildly developmentally delayed.

He was even reading and doing simple math.

He experienced his first grand mal seizure at age 6. The struggle began to keep the seizures controlled so he could continue to learn and to progress.

In 1990, we took him to the only TSC clinic in the United States, where the neurologist warned us that puberty would bring the greatest challenges of all. The chemical changes to his brain would most likely exacerbate the seizures and challenge his learning potential.

Reality was considerably worse.

By age 13, as the seizures increased in duration and type, and we added multiple seizure medications. The side effects and drug interactions caused “psychotic behaviors” that required more medications.

These caused Colin to stop talking and interacting with us and made him manic to the point that he could not sleep or stop moving.

He began to deteriorate mentally and physically.

As an average family of four with two working adults, we did not qualify for Medicaid or any financial assistance for treatment for Colin.

We were quite lucky to have health insurance, but the coverage was minimal for what was then considered mental and behavioral health issues.

T

his was the beginning of a lifelong mission to find the care and treatment that Colin so desperately needed without the use of psychotropic drugs.

After endless attempts to get help via the traditional routes, we hired a lawyer to help us petition a judge to make Colin a ward of the state in order

Colin McKeirnan

to get Medicaid eligibility.

On the way to the court hearing, we received a call from Medicaid indicating that we did not have to adjudicate him to state’s custody in order to get treatment.

Medicaid had approved treatment for him in a special facility in Austin, Texas. Be careful what you ask for!

T

aking Colin 1,400 miles away from home in 1995 and leaving him with complete strangers was the most difficult decision of my life.

I was on the phone weekly and visited monthly for the next 12 months. Doctors and therapists started the weaning of all psychotropic medications, began new anti-epileptic medications for better seizure control and tried to coax Colin from his psychotic haze back to reality.

I would visit for two to three days each month and watch the therapists work with Colin, especially the occupational therapist.

She used every trick she knew to get him to respond to her.

She tried to relax his overstimulated central nervous system to allow him to relearn simple skills he had lost.

Her methods were so inspiring and effective that I decided that I needed to learn how to work with Colin using these techniques so he would never have to take these drugs to function again.

Colin came back from Texas in 1997 after almost two years away and was accepted into the neurobehavioral unit at Caritas Peace, a mental health facility in Louisville, where he lived for five years.

He began the slow journey back to the real world. His unbelievably sweet nature and unstoppable desire to do what was asked of him began to pay off.

He started to enjoy life again, especially the books and puzzles that had always been so important to him.

A

t the age of 21 in 2002, he aged out of Caritas and was admitted to Central States Intermediate Care Facility in La Grange.

It was not where I wanted him to be, but it was the only option in Louisville, where I lived, and I never want him to live away from his family again.

By this point, I was a licensed occupational therapist and used the clinical knowledge I gained to help his treatment team.

Because he was not taking any psychotropic medications, he was

much calmer and began to talk again, saying one or two words at a time.

His seizures continued to increase in number and length, and we tried every new seizure medication that came out.

Right before leaving Caritas, Colin had a Vagus Nerve Stimulator implant. Seemingly ineffective at first, it turned out to be the best treatment for reducing seizures over the next 10 years.

At our worst point, Colin was having more than 150 seizures a month. Today, Colin averages approximately 30 seizures a month.

Missy R. McKiernan Parent, Professional, Advocate

M

issy R. McKiernan is an occupational therapist (after 25 years in the travel business and managing her own business for 12 years) who is starting her 10th year at the Hazelwood Center, first as an occupational therapist and now as the Director of the Transition Department.

She graduated from Spalding University in 2001 and has worked as an occupational therapist at an adult day center for adults with intellectual disabilities, at the STAR program at the Weisskopf Child Evaluation Center with children with autism and as an OT for Hazelwood’s community homes.

She uses her clinical OT skills and her personal experience as a guardian of an individual with intellectual disabilities to assist individuals who live in staterun facilities to move into community homes with needed supports.

She is a member of the Commonwealth Council on Developmental Disabilities and past chair of the Public Policy committee. She is also a member of the 144 Commission, which advises the Cabinet for Health and Family Services.

“It has been my personal mission to try to unite individuals with disabilities and their families to advocate for services that fit the needs of every person with a disability, regardless of where they live to receive those supports,” McKiernan said.

“We need a spectrum of services, from facilities to in-home supports, to allow everyone to be safe, healthy and happy, and live where they believe they can reach their fullest potential.

“I continue to hope that we will allow program supports to fit people and not force people to fit programs, so that my son will not be the round peg in the square hole he has been for the past 32 years.” t 2014-2015 Exceptional Family KY

13

Colin McKeirnan

Still, the timing and severity of his seizures continue to determine good days from bad for him.

Colin is 32 years old now and lives at Bingham Gardens, a state-run facility in the south end of Louisville, with other adults with intellectual disabilities.

My hope for Colin is that he can move into a community home and receive the medical and staff supports that are vital for him.

He works in the kitchen at the Hazelwood Center care facility five days a week for two hours, cleaning and greeting others as he works.

He earns minimum wage and dresses very well with the money he earns and has an impressive book and puzzle collection.

He spends many hours a day working puzzles from his collection of more than 150 ranging from 100 to 300 pieces each.

He has developed an interest in

painting and works with an art therapist.

He has had paintings in art shows in Louisville and in Chicago and earns extra income selling his art.

He comes home with his brother, me and my significant other every Sunday to have pizza and watch sports on TV with us.

He is a joy to us and to everyone whom he meets, and I think the world is a better place because he lives in it.

Colin touches people in significant ways with his wonderful smile and beautiful blue eyes.

My favorite thing in the world is being Missy-Mom to Colin, who greets me with smiles, hugs and kisses every time I see him.

What mother could ask for anything better? t

An accomplished artist, Colin McKiernan, 32, has shown his paintings in Louisvillle and Chicago, earns extra income selling his art and works with an art therapist.

SOCCER FOR ATHLETES WITH SPECIAL NEEDS

Join the Fun and Excitement of Organized Soccer Open to athletes with special needs ages 4 and older Fall and Spring Seasons Athlete Buddies Available Uniform shirts provided

Cost $25 per season To register go to www.lysa.org

Questions: 859-223-5632 or info@lysa.org

WWW.LYSA.ORG/TOPS/

14

www.lexingtonfamily.com

We choos e Passport because they hel p us understan d our son’s diabetes.

We’d heard of diabetes before, but when the doctor said that’s what Miguel had, we really didn’t know what it meant. It was scary at first. But the diabetes educator at Passport really took the time to help us understand what we needed to do. Like the kinds of snacks he needed to carry with him in case his blood sugar dropped. We didn’t think life would ever get back to normal again, but it nearly has.

That’s why we choose Passport.

Find out if you qualify. Call 855-4-KYNECT (855-459-6328) or visit www.kynect.ky.gov and choose Passport – the plan that takes the time to care!

PLAN14155B APP_1/31/2014

2014-2015 Exceptional Family KY

15

Following His Dreams To College Beyond

&

By Will Lyon

Hello, my name is Will Lyon. I am 23 years old.

I live in Lexington with my mom, dad and three dogs. I have a sister and brother-in-law who live in Independence in northern Kentucky.

This May I’ll become an uncle!

I had a normal childhood. When I was growing up, my family would go on day trips and longer vacations – do fun things together as a family.

On weekends we would take day trips to zoos, museums and parks.

On spring break or during the summer, we would go to Disney World or the beach.

I used to watch Disney movies until I found out 16

www.lexingtonfamily.com

they weren’t accurate to the source materials.

Growing up, I developed an interest in mythologies, anime and steampunk.

One of my favorite holidays is Halloween because I enjoy the haunted houses that are hosted each year.

I am a bibliophile – I enjoy books and have hundreds of them. I also enjoy learning about different cultures and religions.

Will Lyon

Higher Education SHEP Program Helps Students With Intellectual Disabilities Succeed in College Environment

I am now learning about a neopagan earth-based religion, Wicca.

W

hen I was about 6 years old, I was identified with high-functioning autism spectrum disorder. I also have math learning disabilities.

I love to learn, especially about my passions!

But I have trouble understanding things, especially social skills and relationships.

I have learned how to be tolerant about other people’s likes and beliefs.

It’s also sometimes hard to pay attention and hold conversations when it’s something

I am a bibliophile – I enjoy books and have hundreds of them. I also enjoy learning about different cultures and religions. I’m also interested in mythologies, anime and steampunk.

I’m not interested in.

I’m a visual learner. Like Dr. Temple Grandin, I think in pictures, and it’s hard to think in abstract words and concepts.

The way I think is not wrong – it’s just different.

But I can understand things that people without autism cannot.

I have a great memory and once I learn something, I don’t forget it.

T

By Barry A. Whaley, SHEP Project Director

he Supported Higher Education Project at the University of Kentucky’s Human Development Institute supports students between the ages of 18 to 26 with an intellectual disability to attend college with their peers and realize their goal of becoming “life-long” learners.

SHEP assists students in navigating the complex world of college, providing supports for learning, social inclusion and job preparation for the technical skills of the 21st century.

SHEP offers students the opportunity for an inclusive college experience. SHEP currently supports students at Northern Kentucky University, Bluegrass Community & Technical College, Murray State University, Spalding University and Big Sandy Community & Technical College.

Students supported by SHEP can be enrolled as either traditional students, provided they meet entrance requirements, or as non-traditional students.

Non-traditional students need not meet entrance requirements and are admitted in audit status.

SHEP is designed primarily for nontraditional students who otherwise would not have the opportunity to attend college.

Students are supported via the use of mentors – other college students who take on a variety of roles, based on the needs of SHEP students.

Some mentors attend classes with our students. Others serve as study partners, tutors or they help with organizational skills and social integration.

Peer mentors and students learn from one another, creating mentoring partnerships rather than an unequal

mentor/mentee relationship. Both will learn from the other, improving the quality of life for all involved.

Supported Higher Education became a reality for students in 2008 with new provisions included in the Higher Education Opportunities Act, which allows students with intellectual disabilities to be eligible for financial aid to attend college.

Students have access to Pell Grants, Supplemental Educational Opportunity Grants and Federal Work-Study programs.

HEOA also enables students with intellectual disabilities to enroll in Comprehensive Transition Programs at approved institutions of higher education.

Comprehensive Transition Programs are approved by the U.S. Department of Education and offer a proscribed, fully integrated and individually designed course of study that leads to a “meaningful credential” for the student at the completion of their program.

CTPs focus on academic enrichment, socialization, independent living skills, self-advocacy skills and integrated work experiences.

Students in Kentucky who attend CTPs also have access to Kentucky Educational Excellence Scholarship (KEES) funding.

Currently, Murray State University is the only CTP in Kentucky, although several institutions have applied for CTP status and are awaiting federal approval.

Higher education is becoming a reality for Kentuckians with intellectual disabilities.

The result is students will be better prepared for the jobs of tomorrow and will realize higher wages and benefits than without the benefit of higher education. t

2014-2015 Exceptional Family KY

17

Will Lyon

I went to Lafayette High School in Lexington and graduated with a high school diploma with a 3.5 grade-point average.

I was mostly in general classrooms with support from special education teachers but learned math in resource rooms.

Thanks to SHEP, I now I attend BCTC on the Newtown Campus.

During the spring 2014 semester, I’m taking photography, achieving academic success, and digital communication skills.

I keep working toward being able to earn college credit for courses.

College is great and it is much better than high school. The students are easier to get along with and I can hang out before my classes.

I have had help from many people over the years – my parents, my sister, Ellen; Dr. Glaser; Bev Harp and other SHEP people; Dr. Myra Beth Bundy; and my speech therapist, Ms. Jane

Richardson.

I took driving lessons last fall at EKU. It was a program by Dr. Bundy for young adults with highWill Lyon with his sister Ellen and his parents, Becky and Jim. functioning Will has enjoyed many of the family trips the Lyons have taken. autism who want to learn to drive and get a license.

One of the novels I am currently We practiced on a driving course working on is an urban fantasy series that is used to teach state policemen. I about a teenage boy who can see never learned how to drive until then. legendary creatures.

I was very nervous but in the end I Another book I’m working on is conquered my fear.

“The Land of Nod,” a re-imagining of My dream is to work in a library or children’s classic stories with a dark bookstore, be an author and live in my theme. own house.

Here’s my advice for people with I am learning how to cook, repair disabilities: Keep Calm and Carry things and shop.

On. t

The Autism Society of the Bluegrass serves as resource and support for families in Central KY who care about someone with autism.

Low Interest Loans for Assistive Technology Do you or a family member have a disability?

Are you in need of a van lift, computer, communication device, wheelchair ramp, hearing aids or other assistive technology?

To apply call toll free (877) 675-0195 or apply online:

KATLC.KY.GOV

4.5% Interest Rate Loans can range from $500-$25,000

es Conferenc nal & Educatio s Lecture

Monthly Meetings Monday of Held the last each month ichael’s 6:30 at St. M urch Episcopal Ch te Dr. n 2025 Bellefo Lexington

Reso ur Lend ce ing Libra ry

Annual “Bluegrass Autism Walk” Saturday Oct. 19

Call or visit our website for more information.

http://asbg.org • (859) 299-9000

18

www.lexingtonfamily.com

1100 East Market Street Louisville, KY 40206

502.596.1000 www.homeoftheinnocents.org

Pediatric Medical Care • Dentistry • Hearing/Vision

Home of the Innocents Outpatient Rehab

A Service of Home of the Innocents

is welcoming new patients!

Convenient extended hours!

Schedule your appointment today.

Now accepting patients for Speech Therapy and Occupational Therapy!

502.596.1040

Occupational Therapy: physical, cognitive, psychosocial, sensory-perceptual and/or other aspects of performance

OpenArmsChildrensHealth.org We accept most insurance.

Call or visit our website for details.

This program is funded with support from the Foundation for a Healthy Kentucky’s Kentucky Healthy Futures Initiative and the Social Innovation Fund, an initiative of the Corporation for National and Community Service.

Home of the Innocents Respite Care

Speech Therapy: language, articulation, voice, fluency and feeding/swallowing disorders

Call 502.596.1070 for appointments and information.

Therapeutic Loving foster Care

There’s no place like your home.

Photo by Hayley Moss Photography

When you want to go on vacation with your family...

When you have a family emergency...

When you just need a break...

Do you have a place for your medically fragile child?

Home of the Innocents’ Kosair Charities Pediatric Convalescent Center can provide 24 hour medical care for your child.

Call 502.596.1127 or 502.596.1126 for information.

• Free foster parent training, financial compensation, 24/7 support and supervision.

• Foster care for children ages birth to 20 years old, specializing in therapeutic foster care services.

• Foster homes for teens are especially needed.

Louisville area 502.596.1313 Southern Indiana 812.944.7992 Lexington area 859.669.9220 www.homeoftheinnocents.org 2014-2015 Exceptional Family KY

19

Delegation Of Insulin Injections To School Personnel Is Under Review

By Malicia Hitch

diagnosis of diabetes is a life-changing event for a child and his or her family.

They must learn to manage the right balance of blood sugar in a complicated dance of food, physical activity and insulin amounts.

This dance takes practice to learn and is constantly changing.

However, most parents would be surprised to learn that diabetes can affect a child’s school life and may even result in changing schools.

School nurses and medication Every school district must develop policies on medication, including insulin injections, in line with Kentucky law.

Registered nurses play a large role in medication administration in schools.

However, not every school has a registered nurse on staff.

A school may instead have a health aide or licensed practical nurse (LPN) on staff.

20

www.lexingtonfamily.com

Registered nurses may delegate certain nursing tasks to unlicensed personnel if the nurse determines the task can be safely done by the assigned person.

Unlicensed personnel are individuals other than the child or the child’s family.

Although medication administration can be delegated in certain situations, the Kentucky Board of Nursing has issued an advisory opinion recommending that insulin injections

and carbohydrate counting, two of the important tasks in the complicated dance, should not be delegated.

Under the current advisory opinion, a registered nurse or a parent must give insulin to and count carbohydrates for a child if the child cannot safely do so.

These tasks cannot be delegated to a health aide or an LPN. If a child’s current school does not have a registered nurse, parents face the choice of transferring their child to a school that has a registered nurse or drive to school daily to do these tasks.

The issue of nursing delegation and insulin management has been debated for many years in Kentucky and across the country.

In Scott County, parents of a child with an insulin pump sued the school district in 2009 because the school refused to place the child in his home school and train personnel to work with the insulin pump.

The case was initially decided in

Insulin Injections

favor of the school district but was overturned on appeal and sent back to the district court.

New legislation may allow more freedom in schools, but there are still restrictions in non-school settings In April 2013, the Kentucky Board of Nursing proposed an amendment to the current delegation regulation.

The proposed amendment was the result of much work and discussion from community members and advocacy organizations, including the American Diabetes Association.

The proposed amendment would allow nurses in school districts to delegate insulin administration and carbohydrate counting.

School personnel would be trained to give insulin under doctor’s orders.

Although the amendment was a major step forward in allowing children with diabetes the ability to attend their neighborhood school, an issue with the larger community remained.

The amendment would allow delegation in schools but did not allow the delegation of diabetesrelated tasks, injectable medications, or injections of medications through g-tubes in the community.

This exclusion would have major effects for disabled adults living in the community.

After advocacy from legislators, community members and Kentucky Protection & Advocacy (P&A), the Board of Nursing agreed to remove the community restriction.

The amended regulation passed the Administrative Regulations Review Subcommittee.

Once regulations pass the subcommittee, they are heard at a second committee. If there are no objections, they become final.

However, the Board of Nursing unexpectedly withdrew the regulation before it was heard by the second

committee.

Because the regulation was withdrawn, the amendments allowing school delegation did not become official.

The Board formed a workgroup to draft a new regulation dealing with delegation of nursing tasks in schools. P&A has participated in the workgroup and provided comments on the draft regulation.

The Board of Nursing approved the new regulation in December 2013. It was filed with the Legislative Research Commission and was published in February.

The Board reviewed comments until the end of February. The regulation will be submitted to the Administrative Regulations Review Subcommittee.

During the 2014 legislative session, Rep. Robert Damron filed a bill (House Bill 98), which passed the House and the Senate.

At press time, the House was reviewing amendments made by the Senate.

If the amendments are approved, the bill will be submitted to the governor for approval.

If approved, school personnel could be able to train to administer insulin.

While there is movement to allow training for school children, there is still a restriction on nursing delegation in the community.

For adults with disabilities who can live in the community but require

Changes may be underway to allow school personnel to give insulin injections. assistance with medication, this is a major restriction.

Sen. Julie Denton has filed a bill (Senate Bill 103) to address this issue in the community.

At press time, the bill had passed the Senate and was under review by the House.

P&A is continuing to work with the Board of Nursing to ensure that all members of the community can receive the assistance they need to live safely and in the most integrated setting. Y

Malicia Hitch is a staff attorney with Kentucky Protection & Advocacy. To receive further information on delegation of nursing tasks in schools or in the community, please contact Kentucky Protection & Advocacy at: Kentucky Protection & Advocacy 100 Fair Oaks Lane Third Floor Frankfort, KY 40601 • (502) 564-2967 2014-2015 Exceptional Family KY

21

Making It Work

New Agreement Allows People Like Kendrick Jackson to Find Their Place in the Community

Kendrick Jackson, 30, lives in a personal care home in Mayfield. He attends Mid-Continent University and works part-time at Mayfield Plumbing & Electric Supply.

The following is a speech made by Kendrick at the 874K Rally in Frankfort in January.

My name is Kendrick Jackson and I am a client of Kentucky Protection & Advocacy.

I am 30 years old and single and taking care of myself at Autumn Ridge Personal Care Home for the past six years.

I have worked part-time for four years as a stock clerk and maintenance/janitor at Mayfield Plumbing & Electric Supply (www. mayfieldplumbing.com) I enrolled myself into college at Mid-Continent University in Mayfield in western Kentucky, and I am a sophomore waiting to finish my last class – financial accounting – and graduate with my first degree, Associate of Science with a General Associate Studies major.

After that, I will enter a bachelor degree program and major in business management at MCU. I do not mind the work at my job nor the study time that comes with college.

I am the youngest of my brothers and sisters and will be the first with a college degree.

I am very pleased with Autumn 22

www.lexingtonfamily.com

Ridge staff for taking the time to help me get to work and manage school work with me.

When I was 18 and a senior at Mayfield High, my grades started to drop. I had a 3.75 GPA but that had dropped to 3.2 because I focused my extra time on my girlfriend and sports.

I was thinking ahead to college life and life with my high school girlfriend.

The situation I experienced made me upset and angry because my adopted mother believed the school and my friends did not speak up for me.

I felt that nobody at the school cared about my goals and the life experiences I have been through.

My biological mother had three boys, with me as the youngest. When I was young, we were placed in a foster home in Missouri where I was born.

While living with the foster family, my oldest brother was removed from the home because of poor grades.

As a 9-year-old, he was forced to hold up a heavy dictionary for hours. If he dropped the books, he was whipped.

After leaving Mayfield High School, I entered Western State Hospital where the doctor told me I was labeled with schizophrenia, because I was hallucinating and hearing voices.

After less than two weeks of treatment, I left Western State and returned home to my part-time job (bagging groceries and stocking shelves) and finished my high school diploma at Gateway Academy, an alternative school in Graves County.

A

fter a year of working full time and helping my adopted mom around the house, I began thinking about college.

I applied for and received a foster/ adopted tuition waiver that I can use to pay for college.

So I enrolled at West Kentucky Community & Technical College.

I studied technology, working with wires and electricity.

But after three months, my adopted mom told me I was 18 and it was time for me to be on my own.

Kendrick Jackson

I quit college and my cousin helped me find an apartment. But she put the home in my name and never showed me how to pay bills and she did not attempt to pay anything.

Luckily, I talked to a credit company that helped me resolve the situation.

My relative then turned me over to Autumn Ridge Personal Care Home where I would learn how to become independent by following schedules on medication, taking responsibility for myself, and working and attending college.

I chose to work to make extra money and spend my time wisely.

I went back to college to earn a degree in business management where I see myself working toward personal goals and career advancement.

I

feel that the staff and residents at Autumn Ridge Personal Care Home have lifted me personally and spiritually toward my goals.

I get along very well with staff members.

When I get down they are there to listen to me.

Staff members help explain my illness and the steps I should take to cope with personal problems and the illness.

Personal Care Homes are for people with illnesses or disabilities who require help.

PCH staff members have stepped in to show the way and to help me reach my goals.

I study the Bible with my preacher and Sunday school teacher, and I give glory to God for allowing me to become a better person spiritually and toward other individuals.

I met my biological mom for the first time when I was teenager after my adopted mother and I went through resources to find her.

Now, I call and visit my mother throughout the year and we get along like friends. She takes me to visit family that I have not seen since childhood.

After college, I see myself moving back within the Mayfield community with the help of PCH staff, case management and Protection & Advocacy.

Moving out on my own will give me the opportunity in the future to possibly settle down and get married and start a family of my own. t

Behavioral Health System Reform Personal Care Home Residents Can Live & Receive Services in the Community

O

By Rebekah Cotton

n Aug. 15, 2013 the Cabinet for they face social stigma and isolation, which Health and Family Services entered many could never comprehend. into an Interim Settlement Agreement The potential plaintiffs lived in PCHs from with Kentucky Protection & Advocacy that Paducah to Ashland anywhere from three to will provide more support for Kentuckians ten years. with mental illness.

Their stories are similar, but each person Previously, people with mental illness is unique with diverse strengths, needs, had few housing options – they either lived race, age, religion, work history and in a state hospital or with family members. guardianship status.

Too often, they were homeless and found Although system change was a goal, the themselves in the prison system. potential plaintiffs came first.

Now, the state Cabinet will provide During the litigation, two of the potential supported housing, case management, plaintiffs moved to a home in their peer support, crisis services, supported community with a certified care provider employment, after they were and Assertive evaluated for Community services through Treatment to 600 the Supports for individuals with Community Living serious mental waiver for persons illness living or with intellectual at risk of living disabilities. in Personal Care Another potential Homes over the plaintiff, a former next three years veteran, moved with a promise to a subsidized The eight potential plaintiffs: Top (l to r): Donald Dyer to expand in the apartment with (Waynesburg), Reggie Jackson (Munfordville/Louisville), future. home health.

Robert Finney (Ashland), Rebekah Cotton (Kentucky In addition, Another moved P&A). Bottom: Terry Kirkman and Anne Wagner the Cabinet into his community (Hopkinsville), Izola Fisher (Lexington). Not pictured: amended the with natural Kendrick Jackson (Mayfield) and Lee Geary (Monticello). state supplement supports such funding regulation as family and to add a new category called community friends confident that he would soon receive integration supplementation. Individuals services through the settlement. can apply at their local Department of Four of the potential plaintiffs remain Community Based Services office. at PCHs looking forward to the day when The voices of eight potential plaintiffs they will begin to access the promise of represented approximately 2,300 individuals community services. living in PCHs statewide. The residents faced Community Mental Health Centers are a system that offered them no choice. currently doing in-reach, and the potential The integration mandate requires that plaintiffs will soon begin transition. services to persons with disabilities shall These eight paved the way, and this be provided in the most integrated setting year 100 individuals who were once appropriate to meet their needs. institutionalized in PCHs will move into the Still, it took courage for those eight community following in their footsteps. citizens to share the intimate details of how they were institutionalized in PCHs. Rebekah Cotton is a staff attorney with This act of courage is no small gesture as Kentucky Protection & Advocacy. t 2014-2015 2014-2015Exceptional ExceptionalFamily FamilyKYKY

23 23

It’s the

Law Philip Thomas of Lexington Benefits From Federal Statute That Provides Help To Students With Special Needs

L

Philip Thomas 24

www.lexingtonfamily.com

By John Lynch

ynda and Reggie Thomas of Lexington can point to the day when their youngest son, then in second grade, was labeled a student with special needs as one of the most important moments in Philip’s academic career.

And the Thomases don’t say that lightly. They acknowledge that the diagnosis of dyslexia came against a backdrop of a national debate about African-American boys being disproportionately represented in special education classes. Was Philip one of them, his parents wondered?

Philip Thomas

The highly educated family also found itself in uncharted territory with no previous experience navigating the special education system.

Reggie, a state senator, lawyer and professor at Kentucky State University, is a Dartmouth and Harvard law school graduate Lynda, Director of K-12 Distance Learning & Professional Development at KET, earned her bachelor’s at Wellesley College and her master’s in communications at UK. Their daughter Johanna, 32, is a Dartmouth and University of Pennsylvania law graduate who works for the Federal Communications Commission in Washington, D.C. Leonard, 30, is an assistant professor at Jefferson County Technical College and earned a bachelor’s at Centre College and a master’s at Louisville.

Both Johanna and Leonard performed well in school.

So when Philip displayed mild developmental delays at a young age, Lynda and Reggie took notice but sent off to school a happy, confident, outgoing child.

But by second grade, Philip was struggling at Maxwell Elementary in the city’s Spanish Immersion program.

Tests showed he had a high I.Q. but no phonemic awareness. He could not match letters with sounds.

“When he became a special ed. student we got lots of feedback,” Lynda said. “We knew that many AfricanAmerican boys were getting dumped into special ed. and we had fears.

“But we also knew that he needed these resources, strategies and extra help.”

Philip also had one other thing on his side – the law. Because of the Individuals with Disabilities Education Act, which mandates that public school students with special needs receive the supports they need, Philip always had appropriate help though his Individualized Education Plan.

“When he first got that label, we were

Singing Philip’s Praises

As a 10-Year-Old, He Wows Wedding Crowd With ‘My Girl’

T

he Thomases knew their youngest child was fearless when as a 10-year old, he made his public singing debut.

During the wedding reception for the family’s babysitter, Philip suddenly popped out of his chair, took the microphone and announced to all present that he had a song for the bride.

He then sang “My Girl” to the delight of all present.

Did he have singing lessons or singing experience?

“Noooo,” said his father Reggie.

“But he sure had a lot of confidence and presence.”

Those qualities benefitted him again in high school where he played on the soccer team and was the kicker on the football team.

He booted a game-winning field goal for Bryan Station against Tates Creek.

“It was November 3, 2002,” said Reggie, who has a knack for remembering

advised to never lose the special ed. designation,” Lynda said. “That was one of the best pieces of advice we ever received.

“It’s so important for a child with special needs to have the federal law to fall back on.”

A

year after the initial diagnosis, the family faced another jarring decision – should Philip repeat third grade?

“Lynda wanted him to repeat the

dates. “It was pouring rain and Bryan Station hadn’t won a city game in a while.

“When Philip went to kick it, Lynda and I couldn’t watch. We just looked up in time to see the ball clear the crossbar.

It was an exciting moment.”

With such self-assurance, it’s not surprising Philip is also a politician, beating his father into public office.

For four years, Philip has held a post as an Advisory Neighborhood Commissioner.

The Commissions in Washington, D.C. consider a wide range of policies and programs affecting neighborhoods, including traffic, parking, recreation, street improvements, liquor licenses, zoning, economic development, police protection, sanitation and trash collection and the District’s annual budget.

Said Reggie, “This is just one more way for Philip to give back.” t grade but I wanted him to go on,” Reggie said. “I worried how this would impact Philip.

“But Lynda fully researched dyslexia.

She had read so much about that I said, ‘You know more about this, so it’s OK if he repeats the grade.”

Lynda added, “We made the decision to give him an extra year as a family.

“I talked to Philip and he trusted me when I said this would be best in the long run. We chose it and made it work as a family.”

2014-2015 Exceptional Family KY

25

ready.

He also benefited from a strong support system.

Along with his parents and siblings, who remain close-knit, Philip was one of six boys pulled aside by teacher Barbara Ward in ninth grade at Bryan Station.

“She told them they had to support each other and love each other, and they did,” Lynda said.

“They’ve all graduated from college and some have earned advanced degrees. They’re still close friends”

A Lynda and Reggie Thomas have raised three college graduates: Philip (Kentucky), Johanna (Dartmouth and Pennsylvania Law) and Leonard (Centre and Louisville for his master’s).

Philip got help and put in the extra effort, working with special education teachers every morning and after school.

He became especially close to Kathy Roberts, the third grade teacher he had for two years. The two formed a close bond and Philip continued to stay in touch, insisting on writing her letters on special stationery in the summer.

“At the time, I felt like she saved his life,” Reggie said.

“Philip was behind but he was catching up and we could see that he could compete.”

H

is competitive nature and engaging personality were his best assets at school.

He learned to network with other students, sit in the front of the class and make strategic alliances.

That resulted in good grades but another shocker came in seventh grade.

26

www.lexingtonfamily.com

Tests showed that Philip was reading at a second-grade level.

“He had developed remarkable compensatory skills but he really couldn’t read,” Lynda said.

“We realized how much effort he was putting in to stay competitive.”

Because he was still designated special ed., Philip was assigned a reading specialist, whom he met with every day before and after school.

Significant improvement soon followed.

By high school at Bryan Station, Philip left the Spanish Immersion program and continued to improve his reading.

Although he didn’t sail through school, he enjoyed a happy, successful high school experience.

He had a 3.1 GPA and like his sister and brother, was a Governor’s Scholar.

He transitioned from an IEP to a 504 plan and received support from Vocational Rehabilitation, which helped him become college and career

fter high school, Philip followed his brother to Centre College but he again struggled.

After three semesters, he transferred to Bluegrass Community & Technical College, which proved to be the best place for him.

“Again we found the benefit of the federal law,” Lynda said.

“The school had a disabilities coordinator and a disabilities office.

Everything was in place to help students like Philip.”

His 504 plan followed him to UK, where he graduated in May 2010, trained to be an elementary school physical education teacher.

Philip is now in his fifth year on the job at a school in Washington, D.C., where he insists on working with the toughest kids.

“He wants the kids that no one is getting through to,” Reggie said. “He wants to give back as a way to thank all of those teachers who helped him.”

His parents know the debt those teachers are owed.

“We should applaud the professionals in those fields who really work hard and really make a difference,” Lynda said.

“Without their help, Philip would not have been successful.

“And there should be no stigma in using the benefits of the federal law because they work.” t

Our family helping your family!

• Connecting families with families • Supporting parent and teen voices within Kentucky’s System of Care • Educating parents, children, and providers on partnering, leadership, teamwork, advocacy….

Kentucky Partnership for Families and Children, Inc. 207 Holmes Street, Frankfort, KY 40601

1-800-369-0533 www.kypartnership.org 2014-2015 Exceptional Family KY

27

A 360 View of Autism Dr. Angela deForest Houchin and Dr. Timothy M. Houchin As a husband who is a child and adolescent psychiatrist and a wife who is a pediatrician, parents often ask us, “What is autism”?

The short answer to this question is that autism spectrum disorder (ASD) is a neuro-developmental disorder of the brain in which children may communicate or socialize differently from their peers.

Children with autism frequently have restricted patterns of interests or activities, may demonstrate repetitive motions such as hand flapping, exhibit language delays and may have problems associated with sensory input.

Sensory problems may include underor over-sensitivity to sights, sounds, smells, tastes and touch.

How Many People Have ASD?

If you ever wish to start an argument with a bunch of doctors just bring up this issue at a dinner party of pediatricians and child psychiatrists.

This number has been a moving target for more than a decade. Why the numbers have changed so dramatically is a debate all its own.

On March 30, 2012 the Centers for Disease Control released astonishing statistics, including the now-famous number of 1 in 88 children suffering from ASD. This set off a national debate that is far from over.

What Causes ASD?

No one knows exactly what causes ASD although we believe there is no single cause. ASD does tend to run in families so we know there is a genetic component.

What we do not know is what factors ultimately “trigger” the development of autism.

Some theories include viral illness 28

www.lexingtonfamily.com

during pregnancy at a critical time in development, viral illness in early childhood, metabolic impairment that prevents a child from ridding the body of toxins (especially heavy metals like mercury).

Along these lines the FDA in 1999 advised that vaccine companies reduce or completely remove thimerosal, a mercury containing preservative, from all vaccines.

Notice we have chosen not to comment on the vaccine debate – that is too large of an issue to be included in a brief article.

Does My Child Have ASD?

Signs and symptoms of ASD are frequently present during the first year of life but they can be easily overlooked.

Many pediatricians utilize a screening questionnaire called the Modified Checklist for Autism in Toddlers, or M-CHAT, at the checkup between16 and 30 months.

The M-CHAT is a list of 23 yes/no questions that parents answer about their child for the pediatrician to score.

The score may tell the pediatrician if the child is at risk for ASD or another

developmental disorder.

In an ideal world any young child suspected of having ASD would be referred to a specialist called a behavior and developmental pediatrician.

Unfortunately, there is a scarcity of these specialists. Waiting lists can run more than six months.

Some general pediatricians are trained to administer the Screening Tool for Autism in Toddlers.

This is a specialized test and requires specialized training at a major academic institution. If the child’s score is high enough, the likelihood of ASD is strong.

My Child Was Diagnosed With ASD. Now What?

Enrolling your child in speech therapy, occupational therapy and possibly physical therapy as soon as delays are discovered is critical.

Perhaps the most evidence-based ASD therapy is Applied Behavioral Analysis therapy. Clearly, a 360-degree approach is ideal, starting with a board certified pediatrician and/or B&D specialist guiding a team of well-trained providers to help your child succeed.

As your child gets older (3-4 years) work with a board certified child and adolescent psychiatrist may be helpful.

Although it may be difficult to hear that your child or loved one has ASD, know that you are not alone and there are experts available in the Bluegrass. t

Dr. Angela deForest Houchin (a.k.a. Dr. Angie) is a board-certified pediatrician practicing at the UK Department of Pediatrics. She successfully completed the STAT-MD program at Vanderbilt University and utilizes these skills to complete ASD diagnostic evaluations in young children.

Dr. Timothy M. Houchin (a.k.a. Dr. Tim) is a triple boarded physician in general psychiatry, child and adolescent psychiatry and forensic psychiatry. He is the founder and president of 360 Mental Health Services. Info: www.360mentalhealth.com and @ drtim360 on Twitter.

We do all the work while you have all the fun!

• Over 16,000 square feet of inflatable slides, jumps, and obstacle courses • Private party rooms and great party packages • Parent lounge with free WiFi • Concessions • Field trips, group events

New Interactive Toddler Zone

1850 Bryant Rd Ste 120 Lexington, KY 40509 859.264.0405 www.monkeyjoes.com

2014-2015 Exceptional Family KY

29

Monkeyjoeslex

Movin’ On Up!

Christopher Nichols, 5-Year-Old From Louisville, Thrives at The Kidz Club

By Deborah Nichols

“I was a normal baby but when I was 6 weeks old, I was hurt badly. God had found me a loving family to take me in and look after me, but the doctors said we had a little waiting to do and that I may not make it.

“My parents stayed with me as much as possible. They knew that with their love and prayers I would make it.

Three weeks later the doctors told them I would probably just lay right there most of my life. There was not much hope of me doing anything.

“Now I am 5 years old and there is no stopping me now.” ­ – Christopher Nichols My husband and I both work, so we knew that we needed to put our Christopher in daycare.

By the time he was a year old, it was clear that a regular daycare was unequipped to care for him.

We didn’t know what to do until someone told us about a place called The Kidz Club. We researched it and made an appointment.

30

www.lexingtonfamily.com

Great for us that The Kidz Club was building a new location right up the street from us in Louisville.

We applied, and in October we were accepted, just three months before Christopher’s first birthday.

It was such a relief to know he was in good hands. The staff consists of RN’s, CNA’s and caregivers.

Who better to care for your child? It’s

like having your own private nanny.

Christopher was non-verbal, nonambulatory, visually impaired, and had CP, epilepsy, brain trauma and more.

First Steps worked with us at home and at the daycare so we were all working on the same thing, in the same way.

The Kidz Club worked with his feedings, monitored his seizures, took his vitals every morning, administered his meds and kept in touch with the doctor when needed.

Staff members have never hesitated to call and keep us informed. Because they are trained, sometimes they would see things that we didn’t or notice things before they got bad.

And the staff lets you know what to ask your doctor just to be on the safe side.

The Kidz Club has different classes for different ages, but it really goes by a child’s developmental age.

Christopher stayed in the infant room till he was 2, when he was trying to sit up and army crawl. Oh yes, our little do-nothing baby was on the move!

Christopher has awesome doctors who help us understand test results and keep us optimistic.

Christopher Nichols

When it was time for Christopher to move to a different room at The Kidz Club, he had no trouble, but I certainly did. “Was he ready for older kids?” I wondered.

The staff reassured us that Christopher needed to be where he could hear the kids play rather than the babies crying.

Of course, they were right and it worked out well for him.

The staff gives my son his breathing treatments every morning. Children are fed breakfast, lunch and snacks.

They can accommodate any child with eating needs. My son, for example, has to have his food mashed or blended because he doesn’t chew.

Tube feedings are available for some children.

The kids play in a safe, fenced-in play area. Inside, The Kidz Club has a computer station, a library area and

many toys for all ages.

What matters most to me are the staff members. They are good people and they care about these kids.

They hug them, they love on them and they get down and play with them. Sometimes when you visit, it feels like your own home.

Often, all the kids are playing together, doing crafts or maybe watching a movie.

I love it when you go in and they are playing the guitar and singing with the kids. Christopher loves music.

My son has been at The Kidz Club for a little over four years now, and some of the first people who cared for him are still there.

Christopher attends preschool half day. Just recently, my son has started riding The Kidz Club Bus. It comes to our home, picks him up and takes him to school, and in the

Christopher Nichols, 5, enjoys time with his extended family who live in Louisville. evenings, he rides the bus home.

This has been a blessing. My car was not wheelchair accessible so I never brought his chair home.

The Kidz Club is a great place for kids. My son and others have many problems, but The Kidz Club can handle the small things too. t

The Kidz Club

Skilled Nursing Care in Nurturing Daycare Setting

T

he Kidz Club is a Prescribed Pediatric Extended Care (PPEC) facility that provides skilled nursing and therapy services to children who have medically complex conditions.

This option permits families to continue working or attending school while their child receives skilled nursing care in a nurturing environment and prevents social isolation of that child.

Children who have a medical diagnosis and require nursing services/monitoring may be eligible to attend a PPEC. The medical conditions may range from asthma/ respiratory conditions to cerebral palsy, neurological conditions, post-surgical intervention, organ dysfunction, uncontrolled

seizures, juvenile rheumatoid arthritis, cardiac, sickle cell, cancer, gastrointestinal or intake/nutritional concerns, post-surgical or traumatic injury care, post-transplant, severe respiratory condition, immunological deficiency, hematological concerns, metabolic disorders, genetic or congenital syndromes, prematurity or birth complications and substance-exposed newborns or children who need medication administration, monitoring of heart rate/ respiration/blood pressure/oxygen

saturation and suctioning.

Following a tour of the center, an initial assessment of the child is performed and a treatment plan is developed that is signed by the evaluating nurse, the child’s physician and parent/ caregiver The staff consists of RNs, SRNAs, teachers and caregivers Attendance may be short or long-term, intermittent or extended, during breaks from school or before/after school care Hours of operation are 6 a.m.-6 p.m., Monday through Friday.

Louisville locations are open on

Saturdays.

If transportation is unavailable, The Kidz Club may assist.

Breakfast, lunch and snacks are provided. The Kidz Club has a full service kitchen where food is prepared and cooked daily by a chef.

Occupational, physical, and speech-language/feeding therapies are available on-site.

Private insurance and Medicaid, including Passport, WellCare, Humana Care Source, are accepted (private insurance submitted on case-by-case basis). t

Locations

Louisville: 7140 Preston Highway, 40219 / (502) 368-9318

225 N. 25th Street, 40212/ (502) 365-2426 Lexington: 1721 Maywick View Lane, 40504 / (859) 224-0799 Erlanger: 527 Watson Road, 41018 / (859) 727-0700 2014-2015 Exceptional Family KY

31

exceptional family ky

Zoe Lovell, 3, is in good hands with her mother, Hillary Smith of Versailles

general Commonwealth Council on Developmental Disabilities 100 Fair Oaks Lane, 4E-F Frankfort, Ky., 40601 (877) 367-5332, (502) 564-7841 http://chfs.ky.gov/ccdd/ CCDD’s mission is to create change through visionary leadership and advocacy so that people have choice and control over their lives.

Attorney Robert McClelland McClelland & Associates, PLLC 1795 Alysheba Way, Unit 2102 Lexington, Ky., 40509 / (859) 543-0061 www.Lexingtonelderlaw.com Robert L. McClelland is an elder law attorney and guardian in the Lexington firm of McClelland & Associates, PLLC. He is a member of the Special Needs Alliance, a national alliance of special needs attorneys who focus their practice in benefits planning and caring for those with special needs family members.

Attorney Karen L. Perch 2333 Alexandria Drive, Lexington, Ky., 40504 (859) 224-0513 / www.perchlaw.com 32

www.lexingtonfamily.com

Resource List 2014-2015

Karen Perch and her staff are dedicated to helping clients with their legal matters regarding Wills, Living Wills, Powers of Attorney, Trusts, including Special Needs Trusts, Qualifying Income Trusts (Miller Trusts) and Family Trusts and Estate Administration

255 Marion Dr., Glasgow, Ky., 42141 (270) 579-5000 ARC of Breckinridge County P.O. Box 37, Harned, Ky., 40144 (800) 755-0539 ARC of Central Kentucky 3320 Tates Creek Rd., Suite 200 ALMOSTfamily/CAREtenders Lexington, Ky., 40502 / (859) 271-4246 Kentucky Home Health Offices ARC of Hardin County Multiple locations P.O. Box 2013, Elizabethtown, Ky., 42701 www.patientcare.com/locationdetail.php?u=Kentucky (270) 737-1140 or (270) 234-0149 for the Learn Program ARC of Kentucky ARC of Lake Cumberland 706 East Main Street, Suite A 130 Southern School Road, Somerset, Ky., 42501 Frankfort, Ky., 40601 (606)-679-4782 (502) 875-5225 / (800) 281-1272 ARC of Logan County arcofky@aol.com / http://arcofky.org 443 Hopkinsville Rd, Russellville, Ky., 42276 The Arc of Kentucky believes that individuals (270) 726-2218 with intellectual and developmental disabilities are The ARC of Louisville Metro contributing members of schools, work places, 3713 Fallen Timber Dr., Louisville, Ky., 40241 churches, synagogues, neighborhoods and (502) 339-8690 their communities. The Arc values services and The ARC of Madison County supports that enhance the quality of life through P.O. Box 1863 Richmond, Ky., 40476 interdependence, friendship, choice, and respect (859) 625-1666 for individuals with intellectual and developmental The Point/ARC of Northern Kentucky disabilities. The Arc’s website includes resources, 104 West Pike Street, Covington, Ky., 41011 projects, events, etc. pertinent to individuals with (859) 491-9191 / www.thepointarc.org intellectual and developmental disabilities and their The ARC of Owensboro families.

P.O. Box 1833, Owensboro, Ky., 42301 ARC of Barren County

Resource Directory (270) 685-2976 P.L.A.N.S. – ARC of Christian County 127 Remington Road, Hopkinsville, Ky., 42240 (270) 889-8300 The ARC of Warren County 4250 Old Glasglow Road, Scottsville, Ky., 42101 (270) 816-7213

Murray, Ky., 42071 / Voice: (270) 753-7676 TDD: (270) 767-0549;Toll Free: (888) 261-6194 calmur@calky.org / www.calky.org Northern Kentucky Location Rene Thompson P.O. Box 12304, Covington, Ky., 41012 (859) 940-3843; TTY: (502) 589-6690 rthompson@calky.org / www.calky.org The Center for Accessible Living is an innovative Best Buddies Kentucky

leader in empowering all people to achieve their 1151 South Fourth Street, Louisville, Ky., 40203 goal of independent living while involving the entire (502) 736-0838 community. www.bestbuddieskentucky.org Pathfinders for Independent Living, Inc. Best Buddies Kentucky, founded in 2009, is dedicated to establishing a global volunteer movement Sandra Goodwyn 105 East Mound Street, Harlan, Ky., 40831 that creates opportunities for people with intellectual (606) 573-5777; (877) 340-7284; TTY: and developmental disabilities such as Down (606) 573-5777 / pathfinders@harlanonline.net syndrome, autism and traumatic brain injuries. www.pathfindersilc.org Pathfinders for Independent Living, Inc. helps Big Brothers Big Sisters of Kentuckiana individuals become self-reliant and live independently 1519 Gardiner Lane, Suite B to ensure their full inclusion in their family and the Louisville, Ky., 40218 community. Pathfinders promotes the independent (877) 588-2300, (502) 587-0494 living philosophy and equal access for all people with www.BigsWanted.com disabilities.

The mission of BBBS is to help all children reach their full potential through professionally supported Independence Place, Inc. one-to-one mentoring relationships.

Lexington Location 1093 South Broadway, Suite 1218 Bluegrass Technology Center Lexington, Ky. 40504 409 Southland Drive, Lexington, Ky., 40503 (859) 266-2807; (877) 266-2807; TTY: (859) 294-4343; (800) 209-7767 (800) 648-6056 / www.independenceplaceky.org www.bluegrass-tech.org Executive Director: Pamela Roark-Glisson BTC is a non-profit, grassroots organization that Independence Place is a non-profit, consumer assists individuals who have disabilities, their families driven, non-residential Center for Independent Living, and service providers in connecting with various serving people with disabilities of all ages. The mission technologies and services that provide the gateway is to assist people with disabilities to achieve their to greater independence, productivity and quality of potential for community inclusion through improving life. BTC is a member of the Alliance for Technology Access, The Eastern Regional Center for the Kentucky access and equal opportunity.

Ashland Location Assistive Technology Service (KATS) Network.

Serena Thornsberry, Branch Director (606) 585-5846 / www.independenceplaceky.org Kentucky Centers for Independent Living Consortium: Disability Resource Initiative Cumberlands Location Patricia Turner / (606) 620-5394 Marilyn Mitchell www.independenceplaceky.org 624 Eastwood Street, Bowling Green, Ky., 42103 (270) 796-5992, Toll free: (877) 437-5045 initiative@dri-ky.org www.resources4independence.org Center for Accessible Living Louisville Location Jan Day 305 W. Broadway, Suite 200, Louisville, Ky., 40202 Voice: (502) 589-6620; TTY: (502) 589-6690 Toll Free: (888) 813-8497 / webinfo@calky.org www.calky.org Murray Location Jeanne Gallimore 1051 N. 16th Street, Suite C

Children’s Home of Cincinnati 5050 Madison Road; Cincinnati, Ohio 45227 (513) 272-2800 Roselawn Offices / 5051 Duck Creek Road Cincinnati, Ohio, 45237 http://thechildrenshomecinti.org The Children’s Home of Cincinnati is a private, non-profit social service agency that improves the lives of children and their families through services in four areas: adoption, early childhood, education and mental health. The Home serves children of all ages and their families, including adoptive children, new parents needing support and guidance, children with

special education needs, and children with mental health diagnoses.

Christian Appalachian Project Lexington Location 2610 Palumbo Drive, Lexington, Ky., 40509 (859) 269-0635 / (866) 270-4227 www.christianapp.org CAP is a Kentucky-based, non-profit Christian organization committed to serving people in need in Appalachia by providing physical, spiritual and emotional support through a wide variety of programs and services.

Court Appointed Special Advocates for Children CASA of Kenton County 303 Court Street, Suite 707 Covington, Ky., 41011 / (859) 392-1792 www.casaforkidsnky.org Court Appointed Special Advocates or CASA volunteers are everyday citizens appointed by judges to advocate for the safety and well-being of abused and neglected children. Last year in Kentucky, more than 700 CASA volunteers advocated for the best interest of more than 3,000 children in 42 counties.

Easter Seals Kentucky At Cardinal Hill Rehabilitation Hospital 2050 Versailles Road, Lexington, Ky., 40504 (859) 254-5701 / www.cardinalhill.org

Easter Seals West Kentucky 801 N. 29th St. / Paducah, Ky., 42001 (270) 444-9687 / www.eswky.easterseals.com

Handi Capable Guide Services P.O. Box 421, Grand Rivers, Ky., 42045 (270) 559-6876

Home of the Innocents 1100 E. Market St., Louisville, Ky., 40206 (502) 596-1000 / www.homeoftheinnocents.org Contact: info@homeoftheinnocents.org Home of the Innocents is the region’s open arms to kids in crisis, providing therapeutic, loving care to children who are victims of abuse, abandonment and neglect. It’s also home to children who have autism and other behavioral health diagnoses; who are medically fragile; and families with exceptional needs.

Open Arms Children’s Health is the Home’s healthcare facility offering pediatric medical, dental, hearing, vision and pharmacy.

Hospice of the Bluegrass 2312 Alexandria Drive, Lexington, Ky., 40504 2014-2015 Exceptional Family KY

33

Empowering people with disabilities and their families since 1952

(859) 276-5344 / (800) 876-6005 www.hospicebg.org Hospice of the Bluegrass provides physical, emotional and spiritual care for adult and pediatric patients with life-limiting illness, and their families, at home, in nursing facilities and at Hospice Care Centers. Support and bereavement services extend to family members and anyone in the community experiencing grief. Hospice of the Bluegrass provides care in 32 central, northern and southeastern Kentucky counties.

Human Development Institute

www.councilondd.org

I cannot begin to tell you what The Council’s parent advocacy training means to me or what it has done for James. I have learned special education law ... and how best to conduct myself and present my input. I no longer go into a meeting (to design my son’s education program) as a mom – begging, crying and yelling. Now I go into meetings as an educated, prepared, professional advocate for my son.

A Metro United Way Agency

Hope. Vision. Voice.

34

www.lexingtonfamily.com

University of Kentucky 126 Mineral Industries Building Lexington, Ky., 40506 (859) 257-1714 www.hdi.uky.edu / www.uky.edu/ coldstream/Companies/uk-humandevelopment-institute HDI’s mission is to promote the independence, productivity and inclusion of people with disabilities and their families throughout the life span. Established in 1969, HDI is a unit of the Office of the Executive Vice President for Research at the University of Kentucky and part of a nationwide network of University Centers for Excellence. The Centers were established by federal legislation to promote team-based approaches to provide services for individuals with disabilities and their families.

HDI and its sister agencies, the Commonwealth Council on Developmental Disabilities and the Kentucky Division of Protection & Advocacy, form the state’s Developmental Disability Network.

The I Believe Foundation 1401 Winchester Ave., 6th Floor Suite F Ashland, Ky., 41105 (606) 922-0702 I Believe is dedicated to creating a fun, learning and therapeutic environment by adapting everyday activities and sports to include children with special needs and their families.

The foundation was established by occupational therapists and provides a variety of life-enriching opportunities where the main goal is to challenge

disabilities and create new abilities by fostering independence, help build friendships, build self-esteem and enhance the quality of life for children and their families.

Kerrinton’s Heart, Inc. P.O. Box 911074, Lexington, Ky., 40591 / (859) 509-9857 www.kerringtonsheart.org Dedicated to the education, support and encouragement of children with heart disease, their families and caregivers.

National Dissemination Center for Children with Disabilities nichcy.org National Dissemination Center for Children with Disabilities is no longer in operation because funding from the U.S. Department of Education’s Office of Special Education Programs ended on Sept. 30, 2013. The program’s web site and all its free resources will remain available until Sept. 30, 2014.

Pathways P.O. Box 790 Ashland, Ky., 41105 (606) 329-8588 / (800) 562-8909 www.pathways-ky.org

Project SAFE: Safety and Accessibility For Everyone Co-Chairs- Beth Metzger Elizabeth. metzger@ky.gov Meg Savage msavage@kdva.org Project SAFE is a multi-disciplinary collaboration of victim service providers, disability-related service providers and criminal justice agencies dedicated to ensuring safety and accessibility for everyone. The mission is advocating to end abuse and violence against individuals with disabilities.

Project SAFE: Kentucky Association of Sexual Assault Programs, Inc. P.O. Box 4028; Frankfort, Ky., 40604 (502) 226-2704 / erecktenwald@ kasap.org.

KASAP’s mission is to speak with a unified voice against sexual victimization. KASAP is funded in whole or in part with public funds. www.kasap.org

Resource Directory

Redwood

Special Olympics Kentucky

71 Orphanage Road Ft. Mitchell, Ky., 41017 / (859) 331-0880 www.redwoodnky.org A non-profit organization funded by United Way, Redwood guides children and adults with multiple and severe disabilities to achieve independence and reach their highest potential throughout their lives, by providing enriching educational, therapeutic and vocational services.

105 Lakeview Court, Frankfort, Ky., 40601 (502) 695-8222; (800) 633-7403 www.soky.org Special Olympics is the world’s largest program of sports training and competition for children and adults with intellectual disabilities.

Recreation Involvement Fund Commonwealth Council on Developmental Disabilities 100 Fair Oaks Ln. 4E-F, Frankfort, Ky., 40601 (877) 367-5332 / chfs.ky.gov/ccdd

ResCare 9901 Linn Station Road Louisville, Ky., 40223 / (502) 394-2100 www.rescare.com Provides supports to people with developmental, cognitive and intellectual disabilities. Services include group homes, supported living, in-home, Telecare, foster or companion care and vocational and habilitation.

Ronald McDonald House Charities of the Bluegrass 1300 Sports Center Dr., Lexington, Ky., 40502 (859) 268-0757 / www.rmhclexington.com This charity exists to create and support programs that directly improve the health and well-being of children and to strengthen families by keeping them together in times of medical need.

Shriners Hospital for Children Spina Bifida Program (Orthopedica clinic only, will refer for pediatric and adult care) 1900 Richmond Road, Lexington, Ky., 40502 (859) 266-2101 www.shrinershospitalsforchildren.org Shriners Hospitals for Children has a mission to provide the highest quality care to children with orthopaedic or neuromusculoskeletal disorders and diseases within a compassionate, family-centered and collaborative care environment.

Social Security Disability Insurance www.ssa.gov

Special Needs Adoption Program DCBS/Adoption Branch 275 East Main Street, 3C-E Frankfort, Ky., 40621 / (800) 928-4303 http://chfs.ky.gov/snap.htm

Superior Van & Mobility 1180 E. New Circle Rd, Lexington, Ky., 40505 (859) 253-1832 / www.superiorvan.com Superior Van & Mobility is an industry leader that provides mobility solutions for the consumer and commercial transportation industry. Member of the National Mobility Equipment Dealers Association (NMEDA) and a participant in NMEDAs Quality Assurance Program (QAP), which is recognition reserved only for the highest quality mobility dealers.

Thomas H. Pinkstaff Medical Home Clinic 333 Waller Ave, Suite 300, Lexington, Ky., 40504 (859) 252-3270 Primary care for children with special health care needs. http://ukhealthcare.uky.edu/Pinkstaff-Clinic/#.

UV7Y_8qnc4w

(270) 745-4KAP (4527) www.wku.edu/kellyautismprogram

Wendell Foster Campus 815 Triplett St., Owensboro, Ky., 42303 kap.owensboro@wku.edu (270) 852-1438 or (270) 663-1460 http://kap.wku.edu/web-forms/contact_us.html

Autism Society of the Bluegrass Support Group 453 Rookwood Parkway, Lexington, Ky., 40505 (859) 299-9000 / sspragens@inbsightbb.com www.asbg.org Autism Society of the Bluegrass ASBG (established in 1991) is a chapter of ASA. Its mission is to provide education, advocacy and support to families, educators and health providers affected by ASD in the Bluegrass.

Autism Society of Greater Cincinnati

P.O. Box 58385, Cincinnati, Ohio, 45258-0385 (513) 561-2300 / www.autismcincy.org ASGC works to promote awareness and education about autism. ASGC provides information packets, support groups for families and individuals, newsletters and public speakers.

United Way of the Bluegrass 100 Midland Ave., Suite 300 Autism Society of Kentuckiana Lexington, Ky., 40508 / (859) 313-5465 P.O. Box 21895, Louisville, Ky., 40221-0895 (859) 233-4460 / Fax (859) 259-3397 Rebecca Thompson, Kentucky Resident Contact www.uwbg.org (502) 263-5708; info@ask-lou.org www.ask-lou.org

United Way of Kentucky P.O. Box 4488, Louisville, Ky., 40204 (502) 583-2821 / Fax (502) 292-5673 www.uwky.org

WHAS Crusade for Children 520 West Chestnut St., Louisville, Ky., 40202 (502) 582-7706 www.whas-crusade.org The WHAS Crusade for Children, Inc., established in 1954, raises money for agencies, schools and hospitals to better the lives of children with special needs. An independent board of interdenominational ministers known as the Crusade Advisory Panel decides how donations are distributed each year.

autism The Kelly Autism Program Western Kentucky University Clinical Education Complex 104 East 14th St., Bowling Green, Ky., 42101 kellyautismprogram@wku.edu

Autism Group at EKU Eastern Kentucky University 100 Ross Drive, Richmond, Ky., 40475 Rita Brockmeyer; (859) 623-6074 myrabeth.bundy@eku.edu http://katcproviders.louisville.edu/providers/detail/204

Families for Effective Autism Treatment (FEAT) 1100 E. Market Street; Louisville, Ky., 40206 (502) 596-1258 / www.featoflouisville.org

Kentucky Autism Training Center University of Louisville Autism Center at Kosair Charities 1405 E. Burnett Avenue. Louisville, Ky., 40217 (502) 852-4631 or 800-334-8635 ext. 852-4631 http://louisville.edu/education/kyautismtraining/

Lexington Adults With Aspergers Meet Up Group 2014-2015 Exceptional Family KY

35

Resource Directory Kay Wright / (859) 266-5739 The Church of St. Michael the Archangel 2025 Bellefonte Drive, Lexington, Ky., 40503 sspragens@insightbb.com

Weisskopf Child Evaluation Center 571 South Floyd St., #100, Louisville, Ky., 40202 (502) 852-5331 https://louisville.edu/medschool/pediatrics/clinical/ wcec Provides center-based and outreach diagnostic evaluations and treatment to infants and children with, or at risk for, developmental disabilities, congenital anomalies, genetic disorders, autism, organic behavior disorders (ADHD) and learning disabilities, as well as genetic counseling to adults.

Green River Area Down Syndrome Association P.O. Box 2031, Owensboro, Ky., 42302 (270) 925-0195 / www.gradsa.org

epilepsy Epilepsy Council of Greater Cincinnati 895 Central Avenue, Suite 550 Cincinnati, Ohio, 45202 (513) 721-2905 / (877) 804-2241 efgc@cincinnatiepilepsy.org http://www.cincinnatiepilepsy.org/

Epilepsy Foundation of Kentuckiana

down syndrome Down Syndrome Association of Central Kentucky P.O. Box 910516; Lexington, Ky., 40591-0516 (859) 494-7809 / www.dsack.org DSACK exists to celebrate the Down syndrome community, support individuals with Down syndrome and their families, educate the Central Kentucky community and assist in local and national research efforts. DSACK celebrates that all people are beautiful, capable and loved. Serves Central and Eastern Kentucky.

Down Syndrome Association of Greater Cincinnati 644 Linn Street Suite 1128, Cincinnati, Ohio 45203 (513) 761-5400 / http://dsagc.com/ By providing families with support, inspiration and information, the Association helps individuals with Down syndrome achieve their maximum potential.

Including individuals with Down syndrome in neighborhood schools, community activities and the business world benefits individuals and their respective communities.

Down Syndrome Association of South Central Kentucky

Kosair Charities Centre 982 Eastern Parkway; Louisville, Ky., 40217 (502) 637-4440; (866) 275-1078 www.efky.org

education Kentucky Adult Education Council on Postsecondary Education 1024 Capital Center Drive, Suite 250 Frankfort, Ky., 40601 / www.kyae.ky.gov (502) 573-5114 V/TTY or (800) 928-7323 V/TTY

Coalition Reform in Special Education Services (C.R.I.S.E.S) 243 Shady Lane, Lexington, Ky., 40503 (859) 278-4991/ tynerwilso@aol.com

Conductive Learning Center of Greater Cincinnati 325 W.19th Street; Covington, Ky., 41014 (859) 261-2333 / http://clcgc.org/ Conductive education is an intensive, multidisciplinary approach to education, training and development for individuals with cerebral palsy, spina bifida and other motor challenges.

Creative Learning Center

Down Syndrome of Louisville, Inc.

Woodland Early Learning Center 575 Woodland Avenue; Lexington, Ky., 40508 (859) 255-3444 www.cclc.com/center/ky/woodland-early-learningcenter

5001 South Hurstbourne Parkway Louisville, Ky., 40291 / (502) 495 5088 www.downsyndromeoflouisville.org

Kentucky Education Agency Rural Representative

PO Box 1611, Bowling Green, Ky., 42101 email: info@dssky.org / www.dssky.org

Capitol Plaza Tower 500 Mero Street, Frankfort, Ky., 40601 36

www.lexingtonfamily.com

(502) 564-4474 / www.education.ky.gov

Kentucky Education Rights Center 1323 Moores Mill Road; Midway, Ky., 40347 (859) 983-9222; kerc@edrights.com www.edrights.com

Kentucky State Department of Education Melissa Terrell 500 Mero St., 6th Floor CPT, Frankfort, Ky., 40601 (502) 564-4770 / www.education.ky.gov

The Kidz Club 7140 Preston Highway, Louisville, Ky., 40219 (502) 368-9318 225 N. 25th Street, Louisville, Ky., 40212 (502) 365-2426 527 Watson Road, Erlanger, Ky., 41018 (859) 727-0700 1721 Maywick View Lane, Lexington, Ky., 40504 (859) 224-0799 www.thekidzclub.com The Kidz Club is a prescribed pediatric extended care facility that provides skilled nursing care for children who are medically fragile in a day care setting.

Kidz Club children range from having highly complex medical conditions to kids that simply need to be monitored or have medication delivered. The Kidz Club provides educational enrichment, therapy followthrough, field trips and activities in a fun and social setting. Transportation can be provided. Medicaid and private insurance accepted. There are no costs to the child or their family.

Music for Life: Music Therapy and Music Education Patricia Guobis, M. M., MT-BC 1815 Deerwood Avenue, Louisville, Ky., 40205 (502) 456-2682 / (502) 767-8308

Northern Kentucky University Office of Disability Services Northern Kentucky University Nunn Drive / Highland Heights, Ky., 41099 (859) 572-6373 http://disability.nku.edu/ NKU provides learner-centered assistance and resources to students with disabilities in their transition to Northern Kentucky University.

Public School Parent Resource Centers Nearly all public schools in the state have Parent Resource Centers, which are divided into 11 Regions.

The mission is to remove nonacademic barriers to learning as a means to enhance student academic success. The Centers are also places where families of children with special needs can receive parent-to-

Resource Directory parent counseling on special education issues and concerns. Families are welcome to visit and preview materials from the lending library, which has many books, videotapes and periodicals related to disability.

The staff can connect parents to resources and support groups and also help with online research.

Region 1: Coordinator Dianne M. Arnett P.O. Box 549, Morganfield, Ky., 42437 (270) 285-2553 or (270) 389-0145 Counties Served: Ballard, Caldwell, Calloway, Carlisle, Christian, Crittenden, Graves, Fulton, Hickman, Hopkins, Livingston, Lyon, Marshall, McCracken, Muhlenberg, Todd, Trigg Region 2: Coordinator Dianne M. Arnett P.O. Box 549, Morganfield, Ky., 42437 (270) 285-2553 or (270) 389-0145 Counties Served: Butler, Daviess, Hancock, Henderson, Logan, McLean, Ohio, Simpson, Union, Warren, Webster Region 3: Coordinator Naela Imanyara 908 West Broadway, 10 East Louisville, Ky., 40203 / (502) 271-7720 Counties Served: Jefferson Region 4: Coordinator Paul Cookendorfer 510 Wilson St., Falmouth, Ky., 41040 (859) 654-3381 Counties Served: Boone, Campbell, Carroll, Gallatin, Henry, Kenton, Oldham, Owen, Shelby, Trimble Region 5: Coordinator Lee Ann Gabbard 3600 Cottage Circle, Lexington, Ky., 40513 (859) 219-3159 or (859) 227-8206 Counties Served: Anderson, Bourbon, Clark, Franklin, Grant, Harrison, Jessamine, Madison, Mercer, Nicholas, Pendleton, Scott, Woodford Region 6: Coordinator Tammy Gay P.O. Box 478, Richmond, Ky., 40476-0478 (859) 200-7777 Counties Served: Bullitt, Boyle, Casey, Clinton, Cumberland, Garrard, Lincoln, Marion, McCreary, Nelson, Pulaski, Russell, Spencer, Taylor, Washington, Wayne Region 7: Coordinator Doug Jones 1750 Eagle Drive, Morehead, Ky., 40351 (606) 207-4287 Counties Served: Bath, Boyd, Bracken, Carter, Elliott, Fleming, Greenup, Johnson, Lawrence, Lewis, Martin, Mason, Menifee, Montgomery, Morgan, Robertson, Rowan Region 8: Coordinator Debbie Clemons 884 Panbowl Branch Road, Jackson, Ky., 41339 (606) 272-7031 Counties Served: Breathitt, Estill, Knott, Lee, Leslie, Letcher, Owsley, Perry, Powell, Magoffin, Wolfe Region 9: Coordinator Maxine Reid P.O. Box 581, Barbourville, Ky., 40906 (606) 546-4767 Counties Served: Bell, Clay, Harlan, Jackson,

Knox, Laurel, Rockcastle, Whitley Region 10: Coordinator Mary Ann McKenzie 109 Consumer Lane, Suite A, Frankfort, Ky., 40601 (502) 229-4789 Counties Served: Fayette, Floyd, Pike Region 11: Coordinator Sherrie Baughn Martin P. O. Box 2532, Elizabethtown, Ky., 42702 (270) 505-6533 Counties Served: Adair, Allen, Barren, Breckinridge, Edmonson, Grayson, Green, Hardin, Hart, Larue, Meade, Metcalfe, Monroe

VSA Arts of Kentucky P.O Box 3320, Bowling Green, Ky., 42101 Delaire Rowe, Executive Director (270) 904-7019 email: director@vsartsky.org Frankfort Office 21st Floor, Capital Plaza Tower, Frankfort, Ky., 40601 (859)272-2515 or (508)564-4970 Email: programs@vsartsky.org www.vsartsky.org

schools Child Development Centers of the Bluegrass 290 Alumni Drive, Lexington, Ky., 40503 (859) 218-2322 / www.cdcbg.org Four-Star rated preschool for children with and without disabilities. Services provided include assessment, evaluations, and speech, physical and occupational therapy.

Academy for Individual Excellence 3101 Bluebird Lane, Louisville, Ky., 40299 (502) 267-6187 / www.aiexcellence.com

The Academy at St. Andrews 2233 Woodbourne Avenue, Louisville, Ky., 40205 (502) 473-7219 / www.theacademy-standrews.org A private school for children with developmental disabilities, such as autism, Asperger’s syndrome, pervasive developmental disorders and other communication and intellectual disabilities.

The dePaul School 1925 Duker Avenue; Louisville, Ky., 40205 (502) 459-6131 / www.depaulschool.org

Growing Together Preschool, Inc. 599 Lima Drive, Lexington, Ky. 40511 (859) 255-4056 / www.GrowingTogetherPreschool. org Growing Together Preschool, Inc. has been offering nurturing child care and early childhood education to children with and without disabilities

in an inclusive environment since 1982. Services include developmental assessment, health screening, evaluations, IEP and IFSP. Staff members have experience working with children of varying abilities and advantages, and integrating recommended therapeutic practices into the classroom. Program is accredited by the National Association for the Education of Young Children. Preschool pioneered the first Kentucky Proud preschool program in the state.

KORE Academy Porter Memorial Church 4300 Nicholasville Road, Lexington. Ky. (859) 971-7129 / www.koreacademy.org School for children with learning differences: Grades 3-12.

The Langsford Center 9402 Towne Square Ave, Cincinnati, Ohio, 45242 (513) 531-7400 2520 Bardstown Road, Louisville, Ky., 40205 (502) 473-7000 2805 N. Hurstburn Pkwy. Ste. 103, Louisville, 40223 (502)245-1706 / www.langsfordcenter.com

The Learning Connection “Where the Right Brain is Visited” Catherine Nagle Senn, Director 2233 Alta Ave.; Louisville, Ky., 40205-1105 (502) 451-8011 / Email: naglesenn@aol.com

The Lexington School’s The Learning Center 1050 Lane Allen Road, Lexington, Ky., 40504 (859) 278-0501 / www.thelexingtonschool.org The Learning Center provides a unique and essential service to children with language-based differences by offering an alternative to traditional classrooms. By creating a teaching environment that eliminates the major obstacles to learning, students are able to close the gap between achievement and their potential. Teacher-student ratios of 1:4 allow for individualized instruction in the core areas of greatest need. In addition, low student teacher ratios will be maintained in other subjects such as science, social studies, computer skills, specials and social skills.

Meredith Dunn School 3023 Melbourne Avenue, Louisville, Ky., 40220 (502) 456-5819 / www.meredithdunnschool.org

Pitt Academy 6010 Preston Hwy; Louisville, Ky., 40219 (502) 966-6979; http://pitt.com/

2014-2015 Exceptional Family KY

37

Writing

Individualized Education Plans

If you suspect your child has a disability and needs special education services, you can make a referral to your school for an IEP plan. Each school has a referral system that explains how that is done.

Parents should be receiving progress notes on how their child is doing on his IEP goals as often as the school gives out report cards to all children. If there is a problem, the team can meet at any time during the year. Although there are many pages to an IEP, there are four main parts to look at in developing an appropriate plan.

1. Levels of performance: Present levels should address all areas of need (communication, phys­ical, academic, social/emotional). They should tell specifically what the child is having problems with and what things work for him. Examples: Poor: Dan is writing below grade level. Better: Dan can write a simple sentence with correct capitalization but struggles with questions and exclamations. By knowing what Dan can and cannot do, you have a place to start to write goals.

2. Goals and objectives: Goals and objectives provide a road map

of what the child is working on and should be making progress on during the coming year. These can be academic, social and behavioral. The school must be able to measure the goals and objectives so everyone will know if the student is making progress. Examples: Poor (too broad and general): Alexis will improve her writing skills. Better: Alexis will be able to write a five-sentence paragraph with correct punctuation and capitalization.

3. Supports and services: These are all the things the team thinks the child needs in order to 1) Make progress on his annual goals; 2) Progress in the general curriculum; 3) Participate in non-academic and extracurricular activities; 4) Be educated with and participate with children without disabilities. Supports and services should be based on what the student needs, not on what is available.

4. Placement: This is the place, classroom(s) and other school environments, where the child can best work on her goals. To the maximum extent possible a student with disabilities should be educated in general education classrooms with supports and services.

Removal should happen only after all supports and services have been tried, and the student cannot achieve her goals in that environment.

There is a continuum of places from the least restrictive (general education classroom) to more restrictive environments, including special classes, home instruction and a hospital.

38

www.lexingtonfamily.com

TIPS n If your child has a current IEP, make sure you have a copy.

Ask the school if you don’t have one. n Review the information in each section so you are familiar with what your child is working on now. n Think about what needs to be in the next IEP.

INFO For more information, call the Kentucky Protection & Advocacy office at 1-800-372-2988 or visit web pages at www.kypa.net.

Resource Directory

Sharon School 200 Oak Tree Lane, Nicholasville, Ky., 40356 (859) 509-6892 / sharonschool@msn.com Homeschool for students with attention deficit disorders and learning disabilities.

The Sphinx Academy 1591 Winchester Road #101 Lexington, Ky., 40505 (859) 309-6372 / www.sphinxacdemy.com New and innovative secondary school for grades 7-12. Combines Montessori, homeschooling and special education.

Sproutlings Pediatric Day Care & Preschool Kosair Charities Center 3701 Frankfort Avenue, Louisville, Ky., 40041 (502) 753-8222 / www.SproutlingsDayCare.com Sproutlings is a dual-licensed program and has spaces for medically fragile children and children in traditional day care or preschool. Staffed by Registered Nurses, Certified Nursing Assistants, Teachers and Teacher Aides and caring for a wide variety of medical conditions. Medicaid and private insurance is accepted.

Stewart Home School 4200 Lawrenceburg Road, Frankfort, Ky., 40601 (502) 227-4821 / www.stewarthome.com Discover a residential school that offers lifelong learning, a postsecondary experience, the opportunity to attain a GED, vocational training and countless social and recreational activities among friends from all around the world.

Summit Academy of Louisville 11508 Main Street; Louisville, Ky., 40043 (502) 244-7090 / apedersen@summit-academy.org www.summit-academy.org

kentucky resources Cabinet for Health and Family Services Commission for Children with Special Health Care Needs http://chfs.ky.gov/ccshcn/staff.htm The Commission for Children with Special Health Care Needs has received a grant from the federal Health Resources and Services Administration to create Family to Family Health Information Centers throughout the commission offices. The centers will be staffed by mentors who are parents of children with special needs and will provide support to families of individuals with special needs. Parents and caregivers

have the opportunity to connect with another parent or caregiver with a similar situation or special health care need.

Locations: Central office / Louisville 310 Whittington Parkway, Louisville, Ky., 40222 (502) 429-4430 / Toll Free: (800) 232-1160 Serving Bullitt, Carroll, Gallatin, Henry, Jefferson, Oldham, Owen, Shelby, Spencer, Trimble counties and statewide.

Ashland 5850 US 60, Summit Plaza Ashland, Ky., 41102 / (606) 929-9155 (800) 650-1329 Serving Boyd, Carter, Elliott, Floyd, Greenup, Lawrence and Magoffin counties.

Barbourville 110 Johnson Lane, Barbourville, Ky., 40906 (606) 546-5109 / (800) 348-4279 Serving Bell, Clay, Harlan, Jackson, Laurel, Rockcastle, Knox and Whitley counties.

Bowling Green 240 Louisville Road, Bowling Green, Ky., 42101 (270) 746-7816 / (800) 843-5877 Serving Allen, Barren, Butler, Christian, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Todd and Warren counties.

Elizabethtown 580 B Westport Road, Elizabethtown, Ky., 42701 (270) 766-5370 / (800) 995-6982 Fax: (270) 769-5121 Serving Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson and Washington counties.

Hazard 103 Town and Country Lane, Suite M Hazard, Ky., 41701 (606) 435-6167 / (800) 378-3357 Serving Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry and Wolfe counties.

Lexington 333 Waller Ave., Suite 300, Lexington, Ky., 40504 (859) 252-3170 / (800) 817-3874 Serving Anderson, Bourbon, Boone, Boyle, Clark, Estill, Fayette, Franklin, Garrard, Grant, Harrison, Jessamine, Kenton, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, and Woodford counties.

Morehead 214 W. First St., Morehead, Ky., 40351 (606) 783-8610 / (800) 928-3049 Serving Bath, Bracken, Campbell, Fleming, Lewis, Mason, Menifee, Morgan, Montgomery, Pendleton, Robertson, and Rowan counties.

Owensboro 1600 Breckenridge St., Owensboro, Ky., 42303 (270) 687-7038 / (877) 687-7038 Serving Daviess, Hancock, Henderson, Hopkins, McLean, Muhlenber, Ohio, Union and Webster counties.

Paducah 400 Park Ave., Bldg. D, Paducah, Ky., 42001 (270) 443-3651 / (800) 443-3651 Serving Ballard, Caldwell, Calloway, Carlisle, Crittenden, Fulton, Graves, Hickman, Livingston, Lyon, Marshall, McCracken, and Trigg counties.

Prestonsburg 5000 Ky. Route 321, Prestonsburg, Ky., 41653 (606) 889-1761/ (800) 594-7058 Serving Floyd, Johnson, Magoffin, Martin and Pike counties.

Somerset Professional Plaza 401 Bogle St., Suite 104, Somerset, Ky., 42503 (606) 677-4120 (800) 525-4279 Serving Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor and Wayne counties.

Family to Family Health Information Centers Western Region Sondra Gilbert / Sondra.GIlbert@ky.gov (270) 852-2918 / (877) 687-7038, ext. 2123 Eastern Region (Including Louisville) Debbie Gilbert / DebbieA.Gilbert@ky.gov (502) 429-4430, ext. 279 (800) 232-1160, ext. 279 www.kyf2f.com Located at the offices of the Commission for Children With Special Health Care Needs, Family to Family HICs are family-run centers that assist families of children and youth with special health care needs and the professionals who serve them. The goal is to help keep children healthy by promoting regular medical care. F2F HICs help families make more informed choices by providing support, information,resources and training. F2F HICs promote access to community based, self-directed services that are available to children with special needs.

KATS (Ky. Assistive Technology Service Network Coordinating Center) 200 Juneau Drive, Suite 200, Louisville, Ky., 40243 (502) 489-8285 / Toll Free (800) 327-5287 www.katsnet.org The KATS Network is the Kentucky Assistive Technology program operating within its lead agency, the Office for the Blind, Education Cabinet. It consists of a statewide network of organizations and individuals connecting to enhance the availability of assistive technology devices and services to improve the productivity and quality of life for individuals with disabilities. In addition to the Coordinating Center located in the McDowell Center in Louisville, there are four regional AT resource centers and two partner satellite centers that are participating members of the

2014-2015 Exceptional Family KY

39

Resource Directory

KATS Network serving Kentucky.

Kentucky Assistive Technology Loan Corporation 275 East Main Street, Mail Stop 2 E-K Frankfort, Ky. 40621 1-877-675-0195 (Toll Free) 1-502-564-6745 (Fax) / www.katlc.ky.gov The Kentucky Assistive Technology Loan Corporation (KATLC) offers low interest loans for qualified applicants with disabilities who need assistive technology. Working with its lending partner, Fifth Third Bank, KATLC can provide loans for modified vehicles, hearing aids, adapted computers, mobility devices, augmentative communication devices or any other type of equipment or home modification that will improve the quality of life or increase the independence of Kentuckians with disabilities.

Children’s Law Center Covington Office: 1002 Russell Street Covington, Ky., 41011 (859) 431-3313/ (866) 386-8313 Email: info@childrenslawky.org Lexington Office: c/o Imani Family Life Center 1555 Georgetown Road, Lexington, Ky., 40511 (859) 253-3357 Provides free legal services for children with educational disabilities, and performs research and policy work, training and education in this area.

Email: rbdiloreto@childrenslawky.org www.childrenslawky.org

Kentucky Comprehensive Care Centers http://dbhdid.ky.gov/cmhc/centers.aspx 40

www.lexingtonfamily.com

Four Rivers Behavioral Health 425 Broadway, Paducah, Ky., 42001 (270) 442-7121/ 24-hour Line (800) 592-3980 Serving Ballard, Calloway, Carlisle, Gallatin, Graves, Hickman, Livingston, McCracken and Marshall counties.

Pennyroyal MH / MR Board 1507 South Main Street, Hopkinsville, Ky 42241 (270) 886-2205 Serving Caldwell, Christian, Crittenden, Hopkins, Lyon, Muhlenburg, Todd, Trigg counties.

River Valley Behavioral Health, Inc. 1100 Walnut Street, P.O. Box 1637 Owensboro, KY 42302 / (270) 689 6500 Serving Davies, Hancock, Henderson, McLean, Ohio, Union, Webster counties.

Lifeskills P.O. Box 6499, Bowling Green, Ky., 42102 / (270) 901-5000 Serving Allen, Barren, Butler, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Warren counties.

Communicare, Inc. 107 Cranes Roost Court, Elizabethtown, Ky., 42701 / (270) 765-2605 http://www.communicare.org Serving Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson, Washington counties.

Seven Counties Services, Inc. 101 W. Muhammad Ali Blvd., Louisville, Ky., 40202 / (502) 589-8600 Serving Bullitt, Henry, Jefferson, Oldham, Spencer, Shelby, and Trimble counties.

NorthKey Community Care 502 Farrell Dr., PO Box 2680; Covington, Ky., 41011 (859) 578-3200 / 877-331-3292 toll-free www.northkey.org Serving Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen and Pendleton.

Comprehend, Inc. 611 Forest Avenue, Maysville, Ky., 41056 (606) 564-4016 Serving Bracken, Fleming, Lewis, Mason, Robertson counties.

Pathways, Inc. 1212 Bath Avenue, 8th Floor, Ashland, Ky., 41101 (606) 329-8588 Serving Bath, Boyd, Carter, Elliott, Greenup, Lawrence, Menifee, Montgomery, Morgan, Rowan counties.

Mountain Comprehensive Care Center 104 South Front Avenue, Prestsonburg, Ky., 41653 (606) 886-8572 Serving Floyd, Johnson, Magoffin, Martin, Pike counties.

Ky. River Community Care P.O. Box 794, 178 Community Way, Jackson, Ky., 41339 / (606) 666-9006 Serving Breathitt, Knott, Lee, Leslie, Letcher, Owsley,

Perry, Wolfe counties.

Cumberland River Comprehensive Care PO Box 568, Corbin, Ky., 40702 (606) 528-7010 Serving Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley counties.

Adanta MH / MR Board 259 Parkers Mill Road, Somerset, Ky., 42501 (606) 679-4782 Serving Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor, Wayne counties.

Bluegrass.org 1351 Newtown Pike; Lexington, Ky., 40511 (859) 253-1686 / www.Bluegrass.org Serving Anderson, Bourbon, Boyle, Clark, Estill, Fayette, Franklin, Garrard, Harrison, Jessamine, Lincoln, Madison, Mercer, Nicholas, Powell, Scott and Woodford counties.

Kentucky PTA P.O. Box 654, Frankfort, Ky., 40602 (502) 226-6607 kentuckypta@bellsouth.net / www.kypta.org

Kentucky Council for Children with Behavior Disorders karen.frohoff@madison.kyschools.us kttp://kycec.org/ccbd_about.htm

Kentucky Department of Education: Division of Exceptional Services 500 Mero Street; Frankfort, Ky., 40601 (502) 564-4970 johnny.collett@education.ky.gov http://education.ky.gov/specialed/excep/Pages/ default.aspx Oversees funding, special education programs, data collection, personnel development, monitoring of school districts, curriculum development and more.

Commonwealth Developmental Disabilities Planning Council Department for Health Services 275 East Main Street; Frankfort, Ky., 40601 (Cabinet address) 100 Fair Oaks Lane 4E; Frankfort, Ky., 40601 (502) 564-7842 / (877) 367-5332 http://www.autismlink.com/listing/kentuckydevelopmental-disabilities-planning-council The Commonwealth Council on Developmental Disabilities, the Kentucky University Center for Excellence (the Interdisciplinary Human Development Institute), and Kentucky Protection & Advocacy collectively gather input from consumers, family members, service providers, and policy makers to determine the primary issues affecting the lives of people with disabilities in Kentucky.

Resource Directory

Disability Specific Web Resources www.disabilityresources.org The web site has a listing of several services available on the Internet.

Kentucky Education Rights Center, Inc 1323 Moores Mill Road; Midway, Ky., 40347 (859) 983-9222 kerc@edrights.com / www.edrights.com

Kentucky First Steps State Lead Agency 275 E. Main St., HS2W-C, Frankfort, Ky., 40621 (877) 417-8377 http://chfs.ky.gov/dph/firstSteps/How+to+Contact+L ocal+Point+of+Entry+Offices.htm First Steps is a statewide intervention system that provides services to children with developmental disabilities from birth to age 3 and their families.

Administered by the Department for Public Health in the Cabinet for Health and Family Services, First Steps offers comprehensive services through community agencies and service disciplines.

Children who participate in early intervention have significant improvement in development and learning.

Helping to decrease the problems early in a child’s development can reduce or prevent costly educational programs in the future.

Barren River District Point of Entry P.O. Box 6499 / 380 Suwannee Trail Bowling Green, Ky., 42103 (859) 901-5749 or (800) 643-6233 Counties served: Allen, Barren, Butler, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Warren Big Sandy District Point of Entry 104 South Front Ave., Prestonsburg, Ky., 41653 (606) 886-4417 or (800) 230-6011 Counties served: Floyd, Johnson, Magoffin, Martin, Pike Bluegrass District Point of Entry 343 Waller Ave., Suite 201 Lexington, Ky., 40504 (859) 271-9448 or (800) 454-2764 Counties served: Anderson, Bourbon, Boyle, Clark, Estill, Fayette, Franklin, Garrard, Harrison, Jessamine, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, Woodford Buffalo Trace District Point of Entry 611 Forest Ave., Maysville, Ky., 41056 (606) 564-3919 or (800) 335-4249 Counties served: Bracken, Fleming, Lewis, Mason, Robertson Cumberland Valley District Point of Entry P.O. Box 568, Corbin, Ky., 40702 (606) 523-0229 or (800) 509-9559 Counties served: Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley

FIVCO District Point of Entry 5850 U.S. 60 / Box 11 Summit Plaza Ashland, Ky., 41102 (606) 929-9155 or (800) 650-1329 Counties served: Boyd, Carter, Elliott, Greenup, Lawrence Gateway District Point of Entry P.O. Box 290, Owingsville, Ky., 40360 (606) 674-3204 or (800) 942-4358 Counties served: Bath, Menifee, Montgomery, Morgan, Rowan.

Green River District Point of Entry 1501 Breckenridge St., Owensboro, Ky., 42301 (270) 852-2905 or (888) 686-1414 Counties served: Daviess, Hancock, Henderson, McLean, Ohio, Union, Webster.

Kentuckiana District Point of Entry Seven Counties Services, Inc. 3717 Taylorsville Road, Louisville, Ky., 40220 (502) 459-0225 or (800) 442-0087 Counties served: Bullitt, Henry, Jefferson, Oldham, Shelby, Spencer, Trimble Kentucky River District Point of Entry 115 Rockwood Lane, Hazard, Ky., 41701 (606) 439-1325 or (800) 328-1767 Counties served: Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry, Wolfe.

Lake Cumberland District Point of Entry 259 Parkers Mill Road, Somerset, Ky. 42501 (606) 678-2821 or (800) 378-2821 Counties served: Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor, Wayne.

Lincoln Trail District Point of Entry 108 New Glendale Road, P.O. Box 2609 / Elizabethtown, Ky., 42702 (270) 737-5921 or (800) 678-1879 Counties served: Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson, Washington.

Northern Kentucky District Point of Entry 401 East 20th Street, 2nd Floor Covington, Ky., 41014 (859) 655-1195 or (888) 300-8866 Counties served: Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen, Pendleton.

Pennyrile District Point of Entry 735 North Drive, Hopkinsville, Ky., 42240 (270) 886-5186 or (800) 609-0047 Counties served: Caldwell, Christian, Crittenden, Hopkins, Lyon, Muhlenberg, Todd, Trigg.

Purchase District Point of Entry 425 Broadway, Suite 204 Paducah, Ky., 42001 (270) 442-6223 or (800)648-6599 Counties served: Ballard, Carlisle, Calloway, Fulton, Graves, Hickman, Livingston, Marshall, McCracken.

Kentucky Division of Protection and Permanency 275 E. Main St., 3E-A, Frankfort, Ky., 40621 (502) 564-6852 / Fax: (502) 564-4653 http://chfs.ky.gov/dcbs/dpp/ If you believe a child is being abused, neglected or is dependent, call the Protection and Permanency office in your county or the Toll Free Child Protection Hot Line. 1-877-KYSAFE1 or 1-877-597-2331.

Pathways to Careers and Special Programs Donnalie Stratton, Program Consultant Capitol Plaza Tower, Room 2113 500 Mero Street, Frankfort, Ky., 40601 (502) 564-3775 www.education.ky.gov

Programs for Children with Disabilities (Ages 3 through 5) Division of Extended Learning Office of Academic and Professional Development 500 Mero Street, Capitol Plaza Tower, 17th Floor; Frankfort, Ky., 40601 / (502) 564-7056 www.kde.state.ky.us (Ages Birth through 2) First Steps Program 3717 Taylorsville Road, Louisville, Ky., 40220 (502) 459-0225; (800) 442-0087 (502) 452-9079 (fax) http://chfs.ky.gov/dph/firststeps.htm Early Intervention Program for Infants and Toddlers with Developmental Delays: Ages Birth to 3.

Kentucky Protection & Advocacy 100 Fair Oaks Lane, Third Floor Frankfort, Ky., 40601 (800) 372-2988/ (502) 564-2967 www.kypa.net Mission is to protect and promote the rights of Kentuckians with disabilities through legally based individual and systemic advocacy, and education. Staff includes professional advocates and attorneys.

Kentucky Self-Advocates For Freedom State Coordinator: Adrienne Grizzell PO Box 23555, Lexington, Ky., 40523 (859) 245-0717 / ajgrizzell@insightbb.com http://kyselfadvocates.com Funded by the Commonwealth Council for Developmental Disabilities, KSAFF is a statewide organization directed by Kentuckians with disabilities and committed to working in partnership with all interested parties to promote equal rights, inclusion, self-advocacy, support and education in all realms of life. The goals are: Speak Up: Self-Advocates speak up for themselves 2014-2015 Exceptional Family KY

41

Resource Directory and teach, coach and support others to speak up for themselves.

Your Rights: Self-Advocates are encouraged to know and exercise their rights.

Education: Self-Advocates are encouraged to inform and educate the general public about rights, needs and issues regarding people with developmental disabilities.

Involvement: Participate in decision-making forums regarding policies that impact people with developmental disabilities.

Raise Funds: Advocate for funding for services and supports on behalf of people with developmental disabilities.

Kentucky Special Parent Involvement Network, Inc. (KY-Spin) 10301-B Deering Rd.; Louisville, Ky., 40272 (502) 937-6894 / (800) 525-7746 Fax (502) 937-6464 / www.kyspin.com KY-SPIN, Inc. is a non-profit organization dedicated to promoting programs that enable persons with disabilities and their families to enhance their quality of life. Fully 85% of all program income goes to direct services to families.

R.E.A.C.H of Lousiville 501 Park Ave. Louisville, Ky., 40208 (502) 585-1911 / http://reachoflouisville.com

Seven Counties Comprehensive Care Services Appointments: (502) 589-1100 (800) 264-8799/ TDD / www.sevencounties.org A community behavioral health and developmental services center serving Bullitt, Henry, Jefferson, Oldham, Shelby, Spencer and Trimble counties. The vision of Seven Counties Services is that all persons affected by mental illness, developmental disabilities, addictions and abuse live satisfying, productive and valued lives. Website includes a 93-page Resource Book called “Build Your Future.”

The Charles W. McDowell Rehabilitation Center Kentucky Office for the Blind 8412 Westport Road, Louisville, Ky., 40542 (502) 429-4460 / www.blind.ky.gov

United Partners in Kentucky UP in Kentucky is a functional, non-compensated partnership to enhance each other’s work on behalf of children, youth and young adults with disabilities and their families. The intention is to collaborate with each other, reduce duplication of effort and help determine and influence policies. www.up-in-ky.com 42

www.lexingtonfamily.com

The Kentucky Office of Vocational Rehabilitation http://ovr.ky.gov/ Office of Vocational Rehabilitation Central Office Cabinet for Human Resources Building 275 E. Main St., Mail Stop 2E-K, Frankfort, Ky., 40621 / (502) 564-4440 Bowling Green (270) 746-7489 / (800) 443-6055 (800) 246-6193 (TTY) Elizabethtown (270) 766-5121 / (866) 883-0001 Florence (859) 371-9450 / (877) 371-9451 Bluegrass/Lexington (859) 246-2537/ (888) 211-7276 Middletown/Louisville (502) 254-3195 / (866) 304-1958 Whitesburg (606) 633-2568 West Liberty (606) 743-7978 / (800) 440-2530 Louisville (502) 595-4173 / (800) 456-3334 Madisonville (270) 824-7549 / (888) 640-2713 Owensboro (270) 687-7308 / (800) 241-5821 (TTY) (888) 640-2811 Paducah (270) 575-7304 Ashland (606) 920-2338 Carl D. Perkins Center (800) 443-2187

Kentucky Youth Advocates 11001 Bluegrass Parkway, Suite 100 Jeffersontown, KY 40299 (502) 895-8167 / (888) 825-5592 http://kyyouth.org

learning differences The Curious Edge – The Reading Room Working with children with dyslexia (859) 899-EDGE (3343) 401 Lewis Hargett Circle, Suite 120 Lexington, Ky. 40503 www.thecuriousedge.com

Learning Disabilities Assn. of Kentucky 2210 Goldsmith Lane, Suite 118 Louisville, Ky., 40218

(502) 473-1256 / (877) 587-1256 www.LDAofky.org This comprehensive mental health professional program includes the “co-morbid” disorders often found with individuals with learning disabilities, including Anxiety, Depression, Obsessive Compulsive Disorder, Anger Control/Bipolar Disorder, and ADHD.

The International Dyslexia Assn. – Ky. Branch P.O. Box 255, Wittensville, Ky., 41274 (859) 263-3631 / http://idakentucky.org/

Dyslexia Solutions Inc. (502) 499-2744 / cbaumert@readfluent.com www.readfluent.com

Dyslexia Association of the Pennyrile 3000 Canton, Suite 4 D, Hopkinsville, Ky., 42240 (270) 885-5804 / www.hopkinsvilledyslexia.org

LD Online The world’s leading website on learning disabilities and ADHD. www.ldonline.org/ldresources/local_org/kentucky.html

Ohio Valley Branch of the International Dyslexia Association 317 East Fifth Street; Cincinnati, Ohio 45202 (513) 651-4747 http://cincinnatidyslexia.org/ A non-profit, scientific and educational organization dedicated to the study and treatment of dyslexia. This Branch was formed to increase public awareness of dyslexia in the Southern Ohio, Southeast Indiana, Kentucky and Huntington, West Virginia areas.

Progressive Educational Program, Inc. Joni Strickland, Director of Tutoring Service and Karen Cress, Certified Dyslexia Tester.

212 Venture Way, Somerset, Ky., 42503 (606) 677-2514 www.progressiveeducationalprogram.com Specializing in tutoring children with Dyslexia.

medical Associates in Pediatric Therapy 1900 Midland Trail, Suite 1 and 2 Shelbyville, Ky.,40065 Louisville Area: (502)-633-1007 Lexington Area: (859)-899-2022 Indiana Area: (812)-542-2771 http://www.kidtherapy.org/ ATP’s unique appeal is that it offers a family approach

Resource Directory with multiple pediatric services including Occupational Therapy, Speech Therapy, Physical Therapy, Nutrition, Developmental Intervention, Audiology, and Mental Health Services with Family Therapists and Psychologist’s to the patient and family in a team approach. ATP strives to provide therapy in a variety of locations that is appealing to the patient and family.

Offices are located in Bullitt County, Shelby County, Jefferson County, Fayette County, & Oldham County.

ATP partners with other pediatric facilities such as All About Kids to provide therapy in a fun and rewarding environment where the child can feel normal.

Brain Injury Alliance of Kentucky 7321 New LaGrange Road, Suite 100 Louisville, Ky., 40222 / (502) 493-0609 www.biak.us

Cardinal Hill Rehabilitation Hospital http://www.cardinalhill.org/ Cardinal Hill Rehabilitation Hospital 2050 Versailles Road, Lexington, Ky., 40504 (859) 254-5701 Cardinal Hill Center for Outpatient Services 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7125 Cardinal Hill Home Care 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7133 Cardinal Hill Rehabilitation Center/Easter Seals of Louisville 9810 Bluegrass Parkway, Louisville, Ky., 40299 (502) 584-9781 Cardinal Hill of Northern Kentucky 31 Spiral Drive, Florence, Ky., 41042 (859) 525-1128

Charles L. Shedd Kentucky Association 4801 Sherburn Ln. LL1 Louisville, Ky. 40207 / (502) 893-0309 www.sheddtutoring.org The Shedd Program provides educational remediation through highly structured teaching methods and materials utilizing a multisensory approach and one-to-one instruction.

SheddTutoring@gmail.com

Cincinnati Children’s Hospital Center for Infants and Children with Special Needs; Cincinnati Children’s Hospital Medical Center; MLC 7009 3333 Burnet Avenue, Cincinnati, Ohio 45229 (513) 636-4200/ (800) 344-2462 TTY: (513) 636-4900 www.cincinnatichildrens.org/svc/alpha/c/specialneeds/default.htm

Dr. F. Allen Walker Creative Psychiatry P.L.L.C. 10200 Forest Green Blvd. Suite 401 Louisville, Ky. 40223 Office: (502) 384-ADHD (2343) www.louisvilleadhd.com drwalker@louisvilleadhd.com

Robert A. Underwood, Ph.D. & Byron White, Psy.D: Edelson and Associates, PSC 7511 New LaGrange Rd. Louisville, Ky., 40223 (502) 423-1151 www.edelsonandassociates.info Neuropsychological, ADHD, Learning Disability, Autism and Psychological Disorder Evaluations.

Horn and Associates in Rehabilitation Greatstone Office 2412 Greatstone Point, Lexington, Ky., 40504 Todds Road Office 4127 Todds Road, Lexington, Ky. 40509 (859) 224-4081 / (859) 224-4261 www.hornrichardson.com HRA offers assessments and intervention from a multi-disciplinary team including physical therapy, occupational therapy, speech-language pathology, psychology, developmental intervention, social work and case management. HRA provides independent evaluation and intervention services. HRA addresses concerns of the individual, family and referral sources including physicians, schools and other agencies.

Families are encouraged to participate through evaluations and therapy, and a focus is placed on providing services that can generalize into academics, home, community and job settings.

www.horntherapy.com

Kentucky Children’s Hospital University of Kentucky, 800 Rose Street, Lexington, Ky., 40536 (859) 257-1000 / (800) 333-8874 www.ukhealthcare.uky.edu/KCH/ Established in 1957, UK HealthCare consists of the medical, nursing, health sciences, public health, dental and pharmacy patient care activities of the University of Kentucky, and in several off-site locations.

The Kidz Club 7140 Preston Highway, Louisville, Ky., 40219 (502) 368-9318 225 N. 25th Street, Louisville, Ky., 40212 (502) 365-2426 527 Watson Road, Erlanger, Ky., 41018 (859) 727-0700 1721 Maywick View Lane, Lexington, Ky., 40504 (859) 224-0799 www.thekidzclub.com The Kidz Club is a prescribed pediatric extended care facility that provides skilled nursing care for children who are medically fragile in a day care setting.

Kidz Club children range from having highly complex medical conditions to kids that simply need to be monitored or have medication delivered. The Kidz Club provides educational enrichment, therapy followthrough, field trips and activities in a fun and social setting. Transportation can be provided. Medicaid and private insurance accepted. There are no costs to the child or their family.

2014-2015 Exceptional Family KY

43

Resource Directory

Julie Kraska, OTR/L Kraska & Associates, Inc. 437 Lewis Hargett Circle Suite 120 Lexington, Ky. 40503 / (859) 219-0956 Private practice providing occupational and speech therapy services. Family-centered approach. Areas of specialty include sensory integration, sensory processing disorder, fine motor/handwriting, dyspraxia, autism, Asperger’s, articulation, phonological disorders, reading programs.

Marshall Pediatric Therapy 105 Windhaven Drive, Suite 1 Nicholasville, Ky., 40356 Phone: (859) 224-2273, Fax: (859) 224-4675 www.mptcares.com Offers occupational and speech therapy for Lexington and surrounding counties. The practice accepts EPSDT, most private insurance plans, participates with Kentucky First Steps, and offers payment plans and provides need-based scholarships from ages birth to 21.

Passport Health Plan 5100 Commerce Crossings Drive, Louisville, Ky., 40229 / (800) 578-0603 EST TDD (800) 691-5566

Member Services 7 a.m.-7 p.m. (EST), MondayFriday / www.passporthealthplan.com Passport Health Plan is a Medicaid managed care plan that has been coordinating health services to qualified members since 1997. Passport is community-based and provider-sponsored, and the only non-profit Medicaid health plan available to members in Kentucky. The mission is to “improve the health and quality of life of our members,” which Passport follows every day through exceptional customer service, a large provider network, and case and disease management programs. To learn more about Passport Health Plan, please visit our website, www.passporthealthplan.com., or call our Member Services department at 1-800-578-0603. TDD users should call 1-800-691-5566.

Professional Home Health Care Agency 141 Prosperous Place, Suite 24 Lexington, Ky., 40509 / www.phhca.com Professional Home Health Care Agency, Inc., a nonprofit organization, is one of the oldest and largest providers of comprehensive and compassionate home healthcare services in Southeastern Kentucky and Central Tennessee. Serving: Fayette, Knox, Laurel and Whitley counties in Kentucky and seven counties in Tennessee.

Safe Kids Fayette County Coalition Kentucky Children’s Hospital 800 Rose St., Lexington Ky. 40536 (859) 323-1153 http://ukhealthcare.uky.edu/safekids/ Safe Kids Fayette County is a program of Kentucky Children’s Hospital in Lexington and one of more than 650 grassroots coalitions in all 50 states and 17 countries, the District of Columbia and Puerto Rico that brings together health and safety experts, educators, corporations, foundations, governments and volunteers to educate and protect families. Safe Kids Fayette County Coalition is a member of Safe Kids Worldwide, a global network of organizations dedicated to preventing accidental injury. Efforts are needed because as many as 90% of accidental injuries can be prevented.

Safe Kids Coalition Kentucky Led by Kentucky Department of Health 333 Waller Ave, Lexington, Ky., 40504 (859) 323-6194 / www.safekids.org Barren County Barren River District Health Department 318 West Washington, Glasgow Ky., 42141 44

www.lexingtonfamily.com

(270) 651-8321, ext. 136 Louisville and Jefferson County Kosair Children’s Hospital 315 E. Broadway, Louisville, Ky. 40202 (502) 629-7335 River Cities Communities King’s Daughters Medical Center 1701 Central Ave., 5th Floor Ashland, Ky., 41101 / (606) 408-9301

SKY Pediatric Dentistry Dr. Mandy Ashley DMD, MsEd, MS 727 US-31 W. Bypass, Suite 101 Bowling Green, Ky., 42101 / (270) 715-5437 www.skypediatricdentistry.com Dentistry for children and teens with special needs.

Square One Specialists in Child and Adolescent Development 6440 Dutchmans Parkway, Louisville, Ky., 40205 (502) 896-2606 / info@squareonemd.com www.squareonemd.com Comprehensive Evaluations: Medical, psychological, psychiatric, educational, and speech-language evaluations are offered to help understand differences that impact children’s and adolescents’ development, behaviors, and emotions.

University of Kentucky School of Psychology Clinic 641 Maxwelton Court, Lexington, Ky., 40506 (859) 257-1381 Psychoeducational assessments, intervention and consultation services to address behavioral, academic, and social-emotional concerns which impact an individual’s learning and development.

University of Louisville Kosair Children’s Hospital 231 E. Chestnut Street, Louisville, Ky., 40402 (502) 629-6000 / www.kosairchildrenshospital.com Kosair Children’s Hospital is a 253-bed teaching facility and serves as a referral center for central and western Kentucky, and southern Indiana. The hospital is also the primary pediatric teaching hospital for the University of Louisville health sciences program.

Each year there are approximately 8,000 admissions, 50,000 Emergency Department visits and 10,500 outpatient clinic visits.

Dental Care in Northern Kentucky for Special Needs Donated Dental Services / (888) 765-6789

Health Point Family Care, Covington 1401 Madison Ave., Covington, Ky., 41011 (859) 655-6100

Resource Directory

NorthKey Community Care 502 Farrell Dr., PO Box 2680; Covington, Ky., 41011 (859) 578-3200 / 877-331-3292 toll-free www.northkey.org Serving Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen and Pendleton.

Paving the way to a community healthy in mind and spirit – that’s what NorthKey Community Care is working toward in the Cincinnati and Northern Kentucky areas with a comprehensive continuum of mental health, developmental disability and substance abuse care.

mental health 360 Mental Health Services Dr. Tim Houchin 1096 Duval Street, Suite 210 Lexington, Ky., 40515 (859) 948-9471 / tim@360mentalhealth.com www.360mentalhealth.com Dr. Tim is one of only 203 physicians triple board certified in child/adolescent psychiatry, general psychiatry and forensic psychiatry. He believes in a holistic, 360-degree approach to evaluating and treating both children and adults.

bluegrass.org 1351 Newtown Pike, Lexington, Ky., 40511 (859) 253-1686 24-hour crisis line: (800) 928-8000 www.bluegrass.org Bluegrass.org has served the 17-county Bluegrass Area for more than 45 years, assisting individuals and families in the enhancement of their emotional, mental and physical well-being by providing behavioral health, intellectual/developmental disabilities and substance abuse services.

The Kentucky Assn. of Regional Programs 152 West Zandale Drive, Suite 201, Lexington, Ky., 40503 / (859) 272-6700

https://sites.google.com/site/kentuckycmhcs A state association whose members are 11 of the 14 community mental health centers in Kentucky.

KARP can connect citizens to their local community mental health center for information about services and support.

Cedar Lake 7984 New LaGrange Rd., Louisville, Ky., 40222 (502) 327-7706 / www.cedarlake.org Cedar Lake is a private, not-for-profit association that incorporated out of common concern for persons with mental retardation and the lack of adequate

residential facilities within the area. Cedar Lake was founded in 1970 by Louisville-area parents of persons with intellectual disabilities. Cedar Lake Lodge began providing campus services in 1974, and added “community-based” service options, Cedar Lake Residences, in 1989. Collectively, Cedar Lake operations employ more than 300 staff members and have an annual operating budget in excess of $15 million, providing services to approximately 200 individuals with intellectual and developmental disabilities.

Division of Developmental and Intellectual Disabilities 100 Fair Oaks Lane 4W-C, Frankfort, Ky., 40621 (502) 564-7702; TTY: (502) 564-5777 www.dbhdid.ky.gov/ddid It is the mission of the Division of Developmental and Intellectual Disabilities to empower each person to realize his or her place in the community as a citizen of Kentucky. To accomplish this mission, DDID will partner with and support persons with intellectual or developmental disabilities, families, advocates, stakeholders and government agencies.

Mental Health America of Kentucky 120 Sears Avenue, Suite 213, Louisville, Ky., 40207 (502) 893-0460 / (888) 705-0463 mhaky@kih.net / www.mhaky.org

Mental Health Association of Northern Kentucky 912 Scott Street, Covington, Ky., 41011 (877) 361-4518 / (859) 431-1077 www.mhanky.org

NAMI Kentucky (National Alliance for the Mentally Ill) c/o Somerset Community College 808 Monticello St., Somerset, Ky., 42501 (606) 451-6935 / (606) 451-6936 (800) 257-5081 / namiky@bellsouth.net http://ky.nami.org NAMI Bowling Green Theresa Eddy (270) 904-0161 theresanamibgky@gmail.com NAMI Buffalo Trace (Maysville) Sharon Darnell (606) 759-4010 ndarnell@maysvilleky.net NAMI Cumberland River Wayne Bullock (606) 256-9250 NAMI Danville Lois Anderson (859) 239-4360 namidanville@gmail.com NAMI Hazard Jaunita Bartley (606) 785-0300 Namihazard@yahoo.com

NAMI Heartland Steve Alexander (270) 351-3730 steve.alexander@hardin.kyschools.us NAMI Henderson/Webster County Beverly Jones (270) 639-1492 bjones.nami@att.net NAMI Hopkinsville Marcia and Jerry Bell (270) 719-0648 namihopkinsville@bellsouth.net NAMI Lexington Theresa Walton, President (859)-272-7891 Phill Gunniing Executive Director pgunning@namilex.org NAMI Louisville George Hersch, President (502) 588-2008 namilou@namilouisville.org NAMI Madisonville Mary Poole, President (270) 824-8673 mary.poole@kctcs.edu April Schmitt (270) 886-5163 aschmitt@pennyroyalcenter.org NAMI Morehead Carol Mauriello (606) 356-8184 (606) 356-9194 / c.mauriello@morehead.st.edu NAMI Nelson County Gary Barr, President (502) 452-7133 Gary.barr@ge.com NAMI Northern Kentucky Kathy Keller (859) 261-4080 coo@naminky.org NAMI Owensboro John Griffith (270) 689-1999 griffdog17@bellsouth.net NAMI Paducah Balinda Hudson (270) 898-8279 bghudson@comcast.net NAMI Somerset Charlotte Stogsdill (606) 274-4565 cstog@windstream.net NAMI Winchester Brenda Harrington (859) 737-3384 bebe1@bellsouth.net

parent support Kentucky Partnership for Families and Children, Inc. 207 Holmes Street; Frankfort, Ky., 40601 (502) 875-1320 / (800) 369-0533 kpfc@kypartnership.org www.kypartnership.org KPFC’s vision is that all families raising youth and children affected by behavioral health challenges

2014-2015 Exceptional Family KY

45

Resource Directory will achieve their fullest potential. KPFC’s mission is to empower families affected by behavioral health challenges to initiate personal and systems change.

Provides diagnostic, therapeutic and educational services for individuals with hearing, speech and language impairments.

The Council on Developmental Disabilities

Kentucky Association of the Deaf

1151 South Fourth Street, Louisville, Ky., 40202 (502) 584-1239 / Fax: (502) 584-1261 info@councilondd.org / www.councilondd.org The mission of The Council is to initiate positive change on behalf of individuals with developmental disabilities. The Council serves people with developmental disabilities of all ages through all stages of life, connecting families to resources and services and providing training and support.

Resources focus on lifelong education and empowerment of constituents. The Council provides support, resources and information to families; advocates on behalf of people of all ages with intellectual and developmental disabilities; initiates changes in laws and regulations that improve public policies, funding and perceptions of people with ID-DD; provides specialized trainings to families (Medicaid waiver, financial planning, guardianship); and offers six-week LEAD (Leadership Education & Advocacy Development) training for parents on special education laws, Individualized Education Plans and principles of advocacy.

PO Box 463 Danville, Ky., 40423-463 www.kydeaf.org

Weber Gallery Weber Gallery specializes in bringing professional artists and artists with disabilities together in integrated exhibitions. Weber Gallery, a program of The Council on Developmental Disabilities, provides an inclusive art venue for talented local, regional and national artists, with a vision toward the inclusion and empowerment of artists with developmental disabilities. Hours: 10 a.m.-4 p.m., Monday-Friday or by appointment.

The Molly Johnson Foundation P.O. Box 215 / Fisherville, Ky., 40023 (502) 724-0067 www.themollyjohnsonfoundation.org The Molly Johnson Foundation was created two years ago to assist families of children with special needs in a variety of ways, including financial help, supplying medical equipment, home accommodations and travel expenses for services. The Molly Johnson Foundation desires to make a difference in the lives of these families in the best way possible.

speech hearing & language Lexington Hearing and Speech Center 350 Henry Clay Blvd. Lexington, Ky., 40502 (859) 268-4545 / www.lhscky.org 46

www.lexingtonfamily.com

Kentucky Commission on the Deaf and Hard of Hearing 632 Versailles Road, Frankfort, Ky., 40601 (502) 573-2604 (V/TTY); (800) 372-2907 (V/TTY, in Kentucky only) kcdhh@mail.state.ky.us / www.kcdhh.org

Kentucky School for the Deaf 303 South Second St., Danville, Ky., 40422 (859) 239-7017 www.ksd.k12.ky.us/ Ensures that deaf and hard of hearing children and youth have educational opportunities to develop their potential to become educated, life-long learners and productive citizens.

Kentucky Speech-Language-Hearing Association (KSHA) 838 E. High St., Suite 263, Lexington, Ky., 40502 (800) 837-2446 / www.ksha.info The mission is to enhance the provision of quality services to persons with communication disorders and their families. KSHA provides broad-based education opportunities, public awareness and policy development initiatives, and by supporting professionals in speech-language pathology and audiology by promoting the highest standards for service providers.

St. Rita School for the Deaf 1720 Glendale Milford Road Cincinnati, Ohio, 45215 (513) 771-7600 / http://srsdeaf.org

service dogs 4 Paws for Ability University of Kentucky Info: UK4PAWS@gmail.com www.wix.com/lmbrig2/4-paws-at-uk

Kentucky Working K-9 Academy Service Dogs for the Disabled 2856 Lilac Road, Leitchfield, Ky., 42754 (270) 259-3647 www.kentuckyworkingk9.com

spina bifida Cardinal Hill Rehabilitation Hospital 2050 Versailles Road, Lexington, Ky., 40504 (859) 254-5701 Cardinal Hill Center for Outpatient Services 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7125 Cardinal Hill Home Care 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7148 Cardinal Hill Rehabilitation Center/Easter Seals of Louisville 9810 Bluegrass Parkway, Louisville, Ky., 40299 (502) 584-9781 Cardinal Hill of Northern Kentucky 31 Spiral Drive, Florence, Ky., 41042 (859) 525-1128

Spina Bifida Association of Kentucky Kosair Charities Centre 982 Eastern Parkway, Box 18, Louisville, Ky., 40217 (502) 637-7363 / (866) 340-7225 sbak@sbak.org / www.sbak.org SBAK is a resource center that provides free services and programs to children and adults with Spina Bifida and their families. The mission is to promote the prevention of Spina Bifida and to enhance the lives of all affected. Have you had your recommended daily dose of Folic Acid? Remember, 400mcg of Folic Acid taken before pregnancy can reduce the risk of having a child with Spina Bifida by 70%.

Shriners Hospital for Children Spina Bifida Program (Orthopaedic clinic only) 1900 Richmond Road, Lexington, Ky., 40502 (859) 266-2101 www.shrinershospitalsforchildren.org

vision Silver Circles, Inc. Catherine C. Barnes, Director & Irlen Diagnostician 2396 New Shepherdsville Road Bardstown, Ky., 40004 / 502-348-7551 www.silvercirclesinc.com The Irlen Method uses colored overlays and precision tinted filters, worn as glasses, to reduce or eliminate perceptual difficulties and light sensitivity.

Department for the Blind 275 E. Main St., Frankfort, Ky., 40601 (800) 321-6668 / (502) 782-3414

Resource Directory http://blind.ky.gov/

Family Eyecare Associates & Children’s Vision and Learning Center Dr. Rick Graebe 105 Crossfield Drive, Versailles, Ky., 40383 (859) 879-3665 / (855) 686-2020 www.myfamilyvision.com Family Eyecare Associates and Dr. Rick Graebe offer the best available eyecare for the entire family.

This includes computerized exams for children and adults; and quality eyeglasses, sunglasses and contact lenses. In addition to general optometric services, Family Eyecare offers unique programs such as Vision Therapy for children experiencing difficulty with reading and/or underachievement at school. Children in these programs average more than a 3-year improvement in performance in 10 to 15 weeks.

Kentucky School for the Blind Division of the Kentucky Department of Education Office of Special Instructional Services 1867 Frankfort Avenue, Louisville, Ky., 40206 (502) 897-1583 / www.ksb.k12.ky.us/ A K-12 public school serving Kentucky students who are blind and visually impaired, offers Short Course program (1-12 weeks) of specialized instruction available to students throughout the school year. Summer school programs are offered in June and July.

development potential through direct services, advocacy and community education. VIPS staff includes certified teachers who specialize in early childhood education, visual impairment, O&M, and special education. Several staff members are also parents of visually impaired children.

other organizations Toyota Bluegrass Miracle League Plays at Shillito Park in Lexington North Lexington YMCA / (859) 258-9622 www.ymcacky.org/main/toyota-bluegrass-miracleleague/ Facebook: Toyota Bluegrass Miracle League A baseball program for youth and adults with special needs. The leagues plays on a specially designed field located at Shillito Park in Lexington. The all-accessible field is the only one of its kind in Kentucky with leagues in both spring and fall.

LYSA’s TOPSoccer Program P.O. Box 24844 Lexington, Ky. 40524-4844 / (859) 223-5632 www.lysa.org/tops TOPSoccer (The Outreach Program for Soccer) is a community-based soccer program designed to meet the needs of athletes with physical, developmental, and/or intellectual disabilities. Player participation and development are key elements of the program.

TOPSoccer is designed to improve the overall fitness, self-esteem and social skills of your athlete.

Family Ky Exceptional

Visually Impaired Preschool Service (VIPS)

Greater Louisville 1906 Goldsmith Lane; Louisville, Ky., 40218 (502) 636-3207 / (888) 636-8477 www.vips.org VIPS-Central Kentucky 161 Burt Road, Suite #4, Lexington, Ky., 40503 (859) 276-0335 / (888-254-8477) www.vips.org The mission of Visually Impaired Preschool Services, Inc. is to offer appropriate services to infants, toddlers and preschoolers who are visually impaired or blind and to their families; and to maximize each child’s

Legacy All Sports

261 Ruccio Way, Lexington, Ky., 40503 (859) 977-8862 www.legacy-gymnastics.com Carousel Kidz is a program to meet your child’s special needs with one-on-one gymnastics and dance lessons.

Family Ky Family Ky Exceptional

Central Kentucky Riding for Hope PO Box 13155, Lexington, Ky., 40583 (859) 231-7066 lauriston@ckrh.org / www.ckrh.org Operated at the Kentucky Horse Park Under the guidance of trained teachers, volunteers and medical people, disabilities are challenged and new abilities are created. The program has proved successful in helping people with a wide range of disabilities develop self-esteem, confidence, coordination and a sense of achievement while learning horsemanship and track riding principles.

Cerebral Palsy K.I.D.S. Center Kids Center for Pediatric Therapies 982 Eastern Parkway, Louisville, Ky., 40217 (502) 635-6397 / www.kidscenterky.org Since 1959, the Kids Center has served families of children with Down syndrome, spina bifida, cerebral palsy, autism, seizure disorders, and a number of other developmental conditions.

Crohn’s & Colitis Foundation of America Kentucky Chapter P.O. Box 573, Prospect, Ky., 40059 (877) 283-7513 / Kentucky@ccfa.org www.ccfa.org/chapters/kentucky/

National Multiple Sclerosis Society Kentucky-Southeast Indiana Chapter 1201 Story Avenue, Suite 200 Louisville, Ky., 40206 / (502) 451-0014 Nationalmssociety.org

Tourette Syndrome Association Lexington Support Group (859) 223-9007 / hollymaec@gmail.com Louisville Support Group (502) 852-7528 / ermark01@louisville.edu www.tsa-usa.org

YMCA of Central Kentucky (859) 254-9622 www.ymcaofcentralky.org t

Exceptional

is sponsored by

Commonwealth Council on Developmental Disabilities 2014-2015 Exceptional Family KY

47

Associates in Pediatric Therapy Advancing Patients to Their Next Therapeutic Level

SERVICES WE PROVIDE All Locations Offer: Speech, Occupational, & Physical Therapy Additional Services Offered: Nutrition, Family Therapy, Psychology, Audiology, Learning Center, & Specialized Testing

WE TREAT Autism, CP, Down Syndrome, Developmental Delays, Learning Disabilities, ADHD, Spinal Cord Injuries, Stroke, Feeding, Sensory Integration, Speech & Language, Torticollis, Toe Walking, & Orthopedic &Neurological Conditions

Find out what is happening at APT by visiting our website at www.kidtherapy.org, joining us on Facebook, & signing up for our monthly e-newsletter!

We are currently accepting most major insurances, Including KY Medicaid, First Steps, and MPW Waivers.

Offices Located at Louisville, Lexington, Shepardsville, Shelbyville, Crestwood,& New Albany Home Office: 502-633-1007 Lexington: 859-899-2022 Indiana: 812-542-2771 48

www.lexingtonfamily.com