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A BABY fering fromgirl from Mt Marth condition a one in a milliona is sufheart whichaffecting her lungs genetic and means she through must breath a tube. e Since birth, four-a old Eve has been nd-a-half-mo nthwithout unable to her breathe First-time oxygen bottle. Shaun Doherparents Georg ie and ty spent months the first of intensive Eve’s life in the two care unit newbo dren’s Hospit at the Royal rn bled to find al while doctor Chils out scramwhat was Eve was wrong. with interst eventually diagno and severe itial lung disease sed (PHA). Thepulmonary hypert(chILD) ension condit borns is said to be ion chILD in newa diagno extremely sed rare, There is three cases a million with no . The couple known cure. has launch FundMe ed campa Eve’s ongoin ign to help a Gopay g medic such as al expens for portab medications le oxygen tanks, es, ments. Up and specialist had raised until Thursday appointnight they $15,20 target, but 0 toward s faces are the future costs a $25,000 the family inestimable. Ms Doher ty said she been back and treatment to the RCH three Eve had weeks ago.since Eve’s discha times for rge 10 “It’s tricky to predic but Eve’s t the until she outcomes will be future, is unknown “It’s all at least two,” she are only really new researc said. a worldwide.handful of cases h as there like this We’ve studies, both in the only read two case past 20 years there US, and over the case studies have only .” been 21 Eve’s geneti c sequen unique. Uncertain ce is said to be daughter future: Georgi Ms Doher e Picture Eve safe at homeDoherty and ed infants ty said some : Yanni of in Mt Martha appear to do not survive, the affect. but others grow “Eve’s lungs out of the condit ion. are still and at age Ms Doher growin two she strong enoug is expect g significant ty said there was extensive h to withstand ed to be really any data on newborns “no ing since treatment. more upside”. and not similar cases she left For examp Eve was hospital, her lungs le, lung transp have received a sing that are not as and signal able to “declare could be. heart and lants, but efficient herself”” of where mously as they treatments acceptance of her complex.” these are enorwe Ms Doher various or be out and go and the time A worryi not. for pram ty said leaving ng she said. this gets logisti we will sign was the house walks – leave and the volum cally hard,” which to enjoy– Shaun gets e of oxyge an increase in Part of the was “tricky Eve seemed and spends n Eve was home at reason ” becaus teachers, breath- cost of the exorbi time” with some “daddy-daugh5pm e the moved to the couple, both tant cost “We have January Mt Marth ter Ms Doher Eve while I take always got of oxygen. was ty a break, to be mindfu and beach for the outdoo a in “It’s hard, said. r lifestyle and l “I’ve taken bush scenery. incredibly but it is reward extended ing: resilient maternity and inspiri Eve is To suppor com/f/breatht Eve visit: gofund ng.” me. e-for-eve
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