Designing for transitions in cancer Transdisciplinary Design Thesis
Emma Javi & Eriksson Arenas
Frank’s Story Clip
Transitions a : passage from one state, stage, subject, or place to another. b : a movement, development, or evolution from one form, stage, or style to another.
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desk research interviews design principles on site observations
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SURVIVORSHIP
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TRANSITIONS PATIENT JOURNEY Spring
research report
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design sprints first prototypes
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Fall interviews interviews conferences
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Guilda’s Club
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feedback
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protoypes
sprint presentations
interviews TD thesis exhibit
feedback interviews Spring
testing PFACQ feedback protoypes testing
interviews
sprint Winter
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Fall interviews interviews conferences
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Guilda’s Club
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feedback
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protoypes
sprint presentations
interviews TD thesis exhibit
feedback interviews
testing PFACQ feedback protoypes testing
interviews
sprint Winter
design opportunities
design opportunities
we begun to map the ecosystem
who are we designing for
WAITING ROOMS Oncology Chemotherapy Radiation Radiology Post surgery discharge
CLINICS Oncology Chemotherapy Radiation Radiology Surgery
DEPARTMENTS AT THE HOSPITAL Social work Integrative medicine Psycho oncology Rehabilitation Sexual Health & Fertility Survivorship PROGRAMS Patient & Caregiver Education Patient to Patient PFACQ Caregiver to caregiver EXTERNAL PATIENT SUPPORT HOME, WORK PLACE & SCHOOL MEDICAL EDUCATION INSTITUTIONS
what space or moment are we designing for
WAITING ROOMS Oncology Chemotherapy Radiation Radiology Post surgery discharge
CLINICS Oncology Chemotherapy Radiation Radiology Surgery
DEPARTMENTS AT THE HOSPITAL Social work Integrative medicine Psycho oncology Rehabilitation Sexual Health & Fertility Survivorship PROGRAMS Patient & Caregiver Education Patient to Patient PFACQ Caregiver to caregiver EXTERNAL PATIENT SUPPORT HOME, WORK PLACE & SCHOOL MEDICAL EDUCATION INSTITUTIONS
interaction points
WAITING ROOMS Oncology Chemotherapy Radiation Radiology Post surgery discharge
CLINICS Oncology Chemotherapy Radiation Radiology Surgery
DEPARTMENTS AT THE HOSPITAL Social work Integrative medicine Psycho oncology Rehabilitation Sexual Health & Fertility Survivorship PROGRAMS Patient & Caregiver Education Patient to Patient PFACQ Caregiver to caregiver EXTERNAL PATIENT SUPPORT HOME, WORK PLACE & SCHOOL MEDICAL EDUCATION INSTITUTIONS
WAITING ROOMS Oncology Chemotherapy Radiation Radiology Post surgery discharge
CLINICS Oncology Chemotherapy Radiation Radiology Surgery
DEPARTMENTS AT THE HOSPITAL Social work Integrative medicine Psycho oncology Rehabilitation Sexual Health & Fertility Survivorship PROGRAMS Patient & Caregiver Education Patient to Patient PFACQ Caregiver to caregiver EXTERNAL PATIENT SUPPORT HOME, WORK PLACE & SCHOOL MEDICAL EDUCATION INSTITUTIONS
WAITING ROOMS Oncology Chemotherapy Radiation Radiology Post surgery discharge
CLINICS Oncology Chemotherapy Radiation Radiology Surgery
DEPARTMENTS AT THE HOSPITAL Social work Integrative medicine Psycho oncology Rehabilitation Sexual Health & Fertility Survivorship PROGRAMS Patient & Caregiver Education Patient to Patient PFACQ Caregiver to caregiver EXTERNAL PATIENT SUPPORT HOME, WORK PLACE & SCHOOL MEDICAL EDUCATION INSTITUTIONS
interaction points
3 interventions
1. the system
1. the system 2. patient and the patient journey
1. the system 2. patient and the patient journey 3. moments of transition in patient journey
1. the system
Address Diversity of Cancer Experience Provide Manageable and Sticky Information Ease Emotional and Physical Adjustment
Fatigue Nausea Lymphedema Hair Loss Weight Gain Pain Menopausal Symptoms Skin Conditions Insomnia Fluid Retention Appetite Loss Dehydration Infection
Fatigue Nausea Lymphedema Hair Loss Identity Social support Sexuality Weight Gain Pain Menopausal Symptoms Grieving Planning Life style Skin Conditions Insomnia Fluid Retention Appetite Loss Dehydration Infection
Fatigue Nausea Lymphedema Hair Loss Identity Social support Sexuality Weight Gain Pain Menopausal Symptoms Grieving Planning Life style Skin Conditions Insomnia Fluid Retention Returning to work Bills Insurance Appetite Loss Dehydration Infection
Fatigue Nausea Lymphedema Hair Loss Identity Social support Sexuality Weight Gain Pain Menopausal Symptoms Grieving Planning Life style Skin Conditions Insomnia Fluid Retention Returning to work Bills Insurance Appetite Loss Dehydration Infection Stress Anxiety Self Esteem Depression
How can we group all this?
Physical Lifestyle Administrative Interpersonal Emotional
Information from
hospitals perspective
Here is info on integrative medicine
Information is
inconsistent
I wish I would have known earlier
Intervention Nยบ1 Clip
game language categories
game language categories
game language categories
size slope material
size slope material
size slope material
Intervention Nยบ1 App Clip
2. patient and the patient journey
Emphasize Progress & Acknowledge Milestones Address Diversity of Cancer Experience Facilitate Giving Back and Getting Back
no consistent way of communicating the patient journey
lack of shared language across
FORWARD set expectations
BACKWARD Reflect back
FORWARD
The most challenging thing about the cancer experience is that almost every patient journey will look different.
Evolution of Patient Journey Clip
TREATMENT PREPARATION & PLANNING
DIAGNOSIS
POST TREATMENT
TRANSITION FROM MSKCC
PERIODIC MONITORING
Intervention Nยบ2 Patient Journey Clip
EXPLICIT
T I C I L P IM
EXPLICIT
IMP LIC IT
ripple effect from design
T I C I L P IM
EXPLICIT
by design intervention
IMP LIC IT
3. moments of transition in patient journey
Emphasize Progress & Acknowledge Milestones Facilitate Giving Back and Getting Back
Will it work?
mmm yes!
Patients ringing the bell after last radiation treatment
designing a ritual
TREATMENT PREPARATION & PLANNING
DIAGNOSIS
POST TREATMENT
TRANSITION FROM MSKCC
PERIODIC PERIODIC MONITORING MONITORING
1st meeting
5 years out PERIODIC PERIODIC MONITORING MONITORING
5 years out
1st meeting PERIODIC PERIODIC MONITORING MONITORING
5 years out
1st meeting PERIODIC PERIODIC MONITORING MONITORING
In the last 5 years I have learned…
5 years out
1st meeting PERIODIC PERIODIC MONITORING MONITORING
In the last 5 years I have learned…
5 years out
1st meeting PERIODIC PERIODIC MONITORING MONITORING
In the last 5 years I have learned…
5 years out
1st meeting PERIODIC PERIODIC MONITORING MONITORING
In the last 5 years I have learned…
1st meeting
Advice
5 years out PERIODIC PERIODIC MONITORING MONITORING
1st meeting
Talisman
5 years out PERIODIC PERIODIC MONITORING MONITORING
TRANSITION FROM MSKCC
PERIODIC MONITORING
Intervention Nยบ3 Periodic Monitoring Ritual Clip
Bye!
Designing for transitions in cancer
Emma Eriksson erike588@newschool.edu Javi Arenas arenj525@newschool.edu
Thanks!