Spring / Summer 2022
A PUBLICATION OF NJ SHARING NETWORK
Volume 14 Issue 1
Joe’s Corner
LEADING THE WAY
This year, we are proud to celebrateNJ Sharing Network’s 35th anniversary. While many things have changed since our inception in 1987, our collective commitment to saving and enhancing lives has always remained a constant. The miracle of donation and transplantation would not be possible without the dedicated support and expertise of our team members, volunteers, local transplant centers and hospitals, and community partners. This issue of Circle of Life looks back on what we have been able to accomplish – together. Throughout our pages, be sure to check out the timeline of milestones and achievements and our legacy of success here in New Jersey. You will also find touching stories of hope from families of generous donor heroes, breakthrough life-saving innovations from our Transplant Laboratory and a focus on programs and initiatives that will help save and enhance more lives. In 2021, New Jerseyans continued to show their caring spirit like never before! The number of organ donors in a single year reached an all-time high as 233 generous individuals gave the gift of life, a 5% increase over last year. In addition, 42,112 (see next page) eye and tissue donations healed and enhanced the quality of life for those in need. The number of New Jerseyans saying ‘YES’ to registering as an organ and tissue donor also jumped 8.3% in 2021, underscoring the overwhelming support for donation in the Garden State. We owe these achievements, first and foremost, to our donor heroes, as well as their supportive families. We forever honor them for their selfless decision to save and enhance the lives of countless others who now have more holidays, birthdays and special moments to share with their loved ones. Looking to the future, NJ Sharing Network is well prepared to handle what comes our way thanks to friends, like you. We understand that there is always more work to be done – more lives to be saved and more ways that we can honor those who gave the gift of life. Thank you for your continued support!
Joseph S. Roth President and CEO, NJ Sharing Network
Joseph S. Roth has appointed Carolyn M. Welsh to the role of Chief Operating Officer (COO) of NJ Sharing Network. Carolyn, who previously served as Vice President and Chief Clinical Officer, now oversees the day-to-day administrative and operational functions of NJ Sharing Network, including leading the organization’s clinical services, information technology, human resources, regulatory compliance, performance improvement, hospital and community outreach, and communications. “I am honored to work with our dedicated team of professionals, community volunteers and partners who are always focused on saving lives and improving the health and well-being of our neighbors,” said Carolyn. “I am forever grateful to Joe for his personal guidance and for continually sharing his experience and wisdom with me. Thanks to Joe and our amazing team, I am confident and excited to take on additional responsibilities and challenges to further advance our united efforts.” In addition to her role at NJ Sharing Network, Carolyn serves on the Board of Directors of Eversight and on the Chief Operating Officer (COO) Council of the Association of Organ Procurement Organizations (AOPO). She currently serves on the AOPO Impact Task Force.
S ince I hired Carolyn 23 years ago, I have taken tremendous pride in personally witnessing her commitment to our life-saving mission and her unique ability to inspire others throughout our organization. Carolyn’s leadership has helped NJ Sharing Network consistently achieve record growth in the number of lives saved and enhanced through organ and tissue donation and transplantation. Her combination of intellect, passion and compassion have enabled her to make a positive impact, not only here in New Jersey, but within the broader organ and tissue donation community.” — Joseph S. Roth, President and CEO
THE PATH TO SAVING MORE LIVES THAN EVER BEFORE
Joe and Carolyn have a bold vision for NJ Sharing Network’s future. The leadership team recently announced an aggressive goal of achieving 300 organ donors in a single year within the next three years. The announcement came on the heels of New Jersey reaching a record high of 233 donors in 2021. “Working to change the world with donation and transplantation is our purpose,” said Carolyn. “We are inspired to lead in this challenge to give hope for the nearly 4,000 New Jersey residents currently waiting for a life-saving transplant.” NJ Sharing Network has developed
strategic plans for growth that include adding talent and resources to support donor families and facilitate the donor process. The Simulation Training Center, which is expected to open this year, will help prepare clinical teams (see page 12) with the best hands-on learning options available. Expansion of NJ Sharing Network’s award-winning #DonationNeedsDiversity awareness campaign will also play a key role in building community trust and dispelling misinformation about donation and transplantation in urban, multicultural communities with the most residents waiting for transplant. Spring / Summer 2022
Inside NJ Sharing Network
FORGING PARTNERSHIPS TO SAVE LIVES
In 2021, New Jersey was more generous than ever in saving lives through organ and tissue donation.
233
Organ Donors Highest number of donors in a single year
599
5%
Organs Transplanted The number of livers recovered for transplant in New Jersey was an all-time high.
42,112
Tissue and Eye Gifts
healed and enhanced quality of life
One tissue donor can enhance the lives of over 75 others.
In the Community Our dedicated clinical team offered the opportunity for organ and tissue donation to more families than ever before. Our award-winning #DonationNeedsDiversity campaign helped raise awareness for organ and tissue donation in multicultural communities throughout New Jersey. There was an 8.3% increase in the number of New Jerseyans registered on the National Donate Life Registry. NJ Sharing Network was named a Best Place to Work in New Jersey for the fourth consecutive year by NJBIZ.
NJSharingNetwork.org
John S. Radomski, MD, Medical Director of NJ Sharing Network, is one of our area’s leading transplant surgeons, and has been recognized as a Jersey’s Best Top Doctor in each of the past seven years. His connection with NJ Sharing Network began in 2002 as Virtua Our Lady of Lourdes Hospital’s representative to NJ Sharing Network’s Transplant Physicians Committee, which brought together New Jersey transplant surgeons and physicians and NJ Sharing Network team members to discuss issues related to organ procurement and transplantation. In 2005, NJ Sharing Network President and CEO Joseph S. Roth named Dr. Radomski to the position of Medical Director. “I have enjoyed every moment working with Joe and the entire team at NJ Sharing Network,” said Dr. Radomski. “I feel extremely fortunate that I have been a part of the journey as NJ Sharing Network has grown and evolved to meet the rising need for organ transplants.” Dr. Radomski has played a vital role in establishing and improving partnerships between NJ Sharing Network, transplant centers, and hospitals throughout New Jersey. He credits the HRSA Transplant Collaborative meetings that began in 2003 with helping to create a unified focus on growing organ donation and transplants.
“By working together, physicians became more aware of Organ Procurement Organizations (OPOs) like NJ Sharing Network in connecting with families to discuss donation and supporting them through the process,” said Dr. Radomski. “In turn, the physicians could give feedback to enable the OPOs to better support the needs of transplant centers and hospital staff.” Dr. Radomski also takes immense pride in witnessing how hospitals, with the guidance and assistance of NJ Sharing Network, have educated and trained their staff to increase organ donation awareness. “I have seen the results of this process in my hospital, Virtua Our Lady of Lourdes, which has seen a steady increase in organ donors thanks to these efforts," said Dr. Radomski. Looking to the future, Dr. Radomski is inspired by NJ Sharing Network’s goal of eventually reaching 300 donors per year. “Under the direction of Joe and Carolyn, NJ Sharing Network has arranged for the procurement of organs from over 200 donors in each of the last three years. Our goal of 300 sets the bar high, but I am confident that our great partnerships within the transplant and hospital communities will continue to lead us to new heights.” Dr. Radomski will continue to serve as part-time Medical Director focusing on transplant center processes and surgical procedures.
I n addition to Radomski’s part-time services, we are extremely fortunate to have Dr. Miskoff join us full-time. — Joseph S. Roth
WELCOME ABOARD
NJ Sharing Network is pleased to announce that Jeffrey A. Miskoff, DO, has also been appointed to the full-time role of Medical Director to oversee clinical management of potential donors and lead education efforts at donor hospitals. Dr. Miskoff specializes in Critical Care Medicine, Pulmonary Medicine and Sleep Medicine. According to President and CEO Joseph S. Roth, “Dr. Miskoff’s tireless dedication to the health and well-being of patients and families has helped him earn countless awards and recognitions for excellence
in care. We look forward to leveraging his perspective and his extensive administrative and clinical experience to advance our life-saving mission.” Dr. Miskoff currently serves as an assistant professor at Hackensack Meridian School of Medicine and a clinical instructor at the University of Medicine and Dentistry of New Jersey – Robert Wood Johnson Medical School. He completed his residency at Philadelphia College of Osteopathic Medicine and Fellowship at Beth Israel Medical Center in New York. Circle of Life 1
To Honor. To Remember. To Give Hope. NJ Sharing Network is deeply saddened by the recent passing of retired Superior Court Judge F. Michael Giles. Known to his family as “Popi,” to his friends as “Mike,” and to everyone else as “Judge G,” he will forever be loved and remembered for his caring spirit and for his leadership in promoting organ and tissue donation. Judge Giles often spoke about the day that he and his son, Dr. Randall Giles, signed up together to become organ donors. Judge Giles soon became a dedicated volunteer, a Sharing Network Foundation Board Member and Chair of various committees. The mission became profoundly personal to Judge Giles when his son tragically passed away in 2012 and gave the gift of life to others as a donor hero. He honored his son’s memory by participating in the Donate Life float at the Rose Parade and in the 5K Celebration of Life with Team Biff’s Gifts. Judge Giles also gave inspirational presentations and helped power outreach efforts in the Garden State’s many diverse, multicultural communities to dispel urban myths and misconceptions about donation. “Those who knew my Uncle Mike are comforted knowing he has been reunited with his wife, son, and daughter in heaven,” said Kimberly Slaton, Donation Resource Coordinator at NJ Sharing Network.
Susan Gulics and her close-knit family experienced tragic loss when her son, Nicholas, passed away in 2014. They will never forget Nicholas’ caring personality and his love for spending time with family and friends. They also take great pride in knowing that Nicholas’ organ and tissue donations saved and enhanced the lives of many people. Susan keeps Nicholas’ memory alive by supporting NJ Sharing Network and encouraging others to register as donors. She enjoys bringing together her many family members and friends to participate in the Sharing Network Foundation’s 5K Celebration of Life events. Susan is also grateful for the counseling and support she received from NJ Sharing Network during the darkest days of her life following Nicholas’ death. “I would not have gotten through those first few months without their support,” said Susan. “The team at NJ Sharing Network treated me like I was family. They were always there for me and would always be open to talk with me when I needed them most.”
Richard DeMair and his wife, Donna Albanese-DeMair, are well known and recognized as the owners of Dairy Queen in Plainfield, one of the largest DQs in the country. They have also earned local recognition and admiration for their active support of many community and service organizations to lend a helping hand to others. Twenty years ago, Donna donated one of her kidneys to save the life of her mother, and she and her family have since served as tireless advocates for NJ Sharing Network. For the past 14 years, Richard has spearheaded a unique effort to provide bicycles for local children and teens in need. He has made it his personal mission to collect, clean and refurbish used bicycles to make them as-good-as-new before they are picked up to go to their new homes. His efforts have dramatically increased each year, and he has now given away over 3,800 bicycles to families throughout New Jersey. Now, Richard and Donna are hoping for some good fortune to come their way. Richard has a serious heart condition that will require him to receive a life-saving heart transplant. “In order for me to continue living, someone will have to die and that weighs heavily on my mind,” said Richard. “I constantly think about the donor and their loved ones. If I do receive a heart, that gift will be so well respected and honored and appreciated. It will be a life changer for me. It will help me to continue to give back to our community.”
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We are so pleased to announce that since this issue went to print, Richard has received his life-saving heart transplant and is doing well!
Spring / Summer 2022
Innovation
Transplant Laboratory Breakthrough
Saves More Lives It was after midnight on a humid summer evening in 2014. Dr. Prakash Rao, Director of the Transplant Laboratory at NJ Sharing Network, was anxiously pacing around his house, sweating a bit, and simply could not sleep. He, along with Jesus Leandro Almendral, MD, had made a decision that meant life or imminent death for a patient about to receive a heart transplant. Their landmark decision was based on the results of a new breakthrough laboratory test that Dr. Rao and his team developed. The IgG Subtype Crossmatch Assay test is different than the standard crossmatch assay, which is performed to provide physicians with information on whether a patient is compatible with an organ donor. Ordinarily, when a standard crossmatch test result comes back as ‘positive,’ the transplant is not recommended, and the patient must wait for another compatible donor. However, the IgG Subtype Crossmatch Assay can distinguish between the different antibody
subgroups that the standard crossmatch does not evaluate. Using this novel assay, Dr. Rao and his team can identify compatibility between donors and recipients, even in the presence of a ‘positive’ standard crossmatch. This first ever case using the IgG Subtype Crossmatch Assay was for patient Michael Peeples, an African American male who was waiting for a heart transplant but had been passed over by 58 potential donors due to a ‘positive’ standard crossmatch result. “I had so many close calls for transplant, but I just kept hope alive,” said Michael. “Unfortunately, my condition just kept getting worse. I had a lot of trouble breathing and could only walk about 50 yards.” If Michael did not get a heart soon, he was going to die, according to Dr. Almendral. “He had received multiple transfusions, was hospitalized for infection, and underwent LVAD (Left Ventricular Assist Device) implantation; all of which sensitized his immune system making him more difficult to transplant,” said Dr. Almendral.
The IgG Subtype Crossmatch Assay test is different than the standard crossmatch assay, which is performed to provide physicians with information on whether a patient is compatible with an organ donor.
Pictured above: Michael Peeples (at center) is joined by family members and medical and laboratory staff, including Jesus Leandro Almendral, MD (third from left), and NJ Sharing Network’s Dr. Dayanand Deo (at left), Dr. Prakash Rao (third from right), and Deepa Iyer, MD (second from right). NJSharingNetwork.org
Circle of Life 3
Since Michael’s transplant, NJ Sharing Network’s
Laboratory Milestones
On August 13, 2014, Dr. Rao and the Transplant Laboratory team were notified that a heart was available, and Michael was, once again, first in line to be evaluated for compatibility. The laboratory performed a standard crossmatch, and as expected, the results came back ‘positive.’ However, this time, Dr. Almendral authorized Dr. Rao to perform an IgG Subtype Crossmatch Assay on Michael and this latest donor. The results of the assay were favorable to move forward with the transplant. “At that point, we took a bold step and agreed to do it,” said Dr. Rao. “We were going for broke, but there was no ‘plan B.’ Michael was in a dire situation. He may not have survived the weekend if we did not move forward with the heart at that time.” Michael’s heart transplant took place the next day, and Dr. Rao nervously waited for the results. “I just could not wait any longer, so I called Dr. Almendral at around 3 o’clock in the morning,” said Dr. Rao. “I was overjoyed when he told me that Michael’s transplant was a success. Michael’s new heart has had no signs of rejection and his biopsies have been pristine. He is now nearly eight years post-transplant and living life to its fullest. He continues to follow up with Deepa Iyer, MD, Program Director of the Heart Transplant Program, and her team at Robert Wood Johnson University Hospital in New Brunswick. “We perform annual surveillance tests on our transplant patients to assess the function of their hearts and all of Mr. Peeples’ annual tests for his heart have shown excellent heart function,” said Dr. Iyer. “We are grateful for the pioneering work developed by Dr. Rao as many more of our highly sensitized patients have benefitted from using this IgG Subtype Crossmatch Assay and were able to be successfully transplanted.”
Transplant Laboratory team has used the IgG Subtype Crossmatch Assay to help 20 additional patients receive life-saving organ transplants despite conventional test results.
“Everything has been amazing in my life since my transplant,” said Michael, who is now 68 years old. “I enjoy all the activities that I did when I was much younger. I walk, ride bikes, and play with my nephews. I feel blessed, and I am forever thankful to NJ Sharing Network.” Since Michael’s transplant, NJ Sharing Network’s Transplant Laboratory team has used the IgG Subtype Crossmatch Assay to help 20 additional patients receive life-saving organ transplants despite conventional test results. The patients include highly sensitized heart and kidney transplant recipients. All of these patients have had successful transplant outcomes. According to the United Network for Organ Sharing (UNOS), of the approximate 90,000 patients waiting for a kidney transplant, 31% are African American. The prevalence of chronic kidney disease is similar across all race groups, however the prevalence of end stage renal disease is greater in minority groups and specifically disproportionately affects African Americans. The IgG Subtype Crossmatch Assay may be able to facilitate increased
rates of transplantation in minority patients to help save more lives in our diverse communities of New Jersey. “In our patient pool of about 4,500 kidney patients, there is a subset of patients that have been crossmatched with the most donors (> 10 donors) and have not yet been transplanted,” explained Dr. Rao. “The majority (59%) of these patients are African American. Based on our data, the most difficult patients to get transplanted are African American. We believe our IgG Subtype Crossmatch Assay will benefit the African American community the most.” The IgG Subtype Crossmatch Assay has been patented by the United States Patent and Trademark Office, as well as
TRANSFORMING The Two Pillars of Personalized Transplant Medicine Institute In addition to the IgG Subtype Crossmatch Assay, the research and development team, also known as the Personalized Transplant Medicine Institute (PTMI) at NJ Sharing Network, is developing additional breakthrough approaches to save and enhance more lives while maximizing the gift of donation. PTMI was created to conduct “bench-to-bedside” research in the areas of Transplant Diagnostics and Regenerative Medicine. PTMI’s primary research goals are to increase the number of transplants, expand the factors of eligibility for transplant recipients, reduce the potential for discarded tissue, and improve the quality of life for transplant recipients by reducing immunological threats to recipients.
1988
1999
2007
2009
2010
2013
2014
Lab opens
State-of-the-art DNA technology implemented
Birth of paired kidney exchange chains
Single antigen bead assays available for the analysis of antibodies
Virtual Crossmatches predict whether a crossmatch will be negative or positive and the strength of any positive crossmatch
IgG Subtype Crossmatch Assay developed (has since patented by the USPTO and other countries)
Regenerative Medicine Initiative launched (has since become the Personalized Transplant Medicine Institute)
4 Circle of Life
internationally. The goal is to make the IgG Subtype Crossmatch Assay readily available and routinely performed so that patients having a ‘positive’ standard crossmatch might still be transplanted safely. “Our IgG Subtype assay can also be used to monitor Antibody Mediated Organ Rejection during the post-transplant period and help the physician to modulate immunosuppressive efficacy,” said Dr. Rao. “We believe that the use of this assay as a routine clinical test for transplant diagnostics will increase transplants specifically in the hardest to transplant patient population.”
TRANSPLANTOLOGY In the years ahead, advancements in transplant diagnostics and regenerative medicine will play a pivotal role in the field of transplantation.
Specialized assays
TRANSPLANT DIAGNOSTICS
Histogenomics Molecular footprint of tolerance
Transplant tolerance
REGENERATIVE MEDICINE
Treatment of cancers, leukemia, anemia, genetic disorders Correction of disease and organ repair Reconstruct organs/tissue
Innovative technologies advance Our Life-Saving Mission Donna King, Senior Laboratory Supervisor, has been a part of NJ Sharing Network since it was formed in 1987. She oversees the lifesaving work of the state-ofthe-art Transplant Laboratory, primarily managing compatibility testing that matches organ donors and transplant recipients. Donna collaborates with a team of technologists to piece together patient background, medical history, and other relevant reports. “Over the years, research has advanced immensely. Transplants that would never have been feasible 35 years ago are happening all the time,” said Donna. “Even after all this time, my job feels rewarding each and every day knowing I make a difference in someone’s life.” Donna is one of the few people who vividly recalls how NJ Sharing Network physically moved its headquarters multiple times as organ and tissue donation continued to increase in the Garden State. “At first, we were located on the lower floor of the office building at 150 Morris Avenue in Springfield,” said Donna. “Our team continued to grow until we took over the second floor. We then moved to a larger space on Mountain Avenue in Springfield before we made
our final move in 2009 to our state-of-the-art headquarters in New Providence, featuring our expanded Transplant Laboratory.” Donna takes pride in recalling how her work in the Transplant Laboratory has evolved over time.
practice for labs to separate T and B cells in blood samples, needed for testing, by using a drinking straw sealed at the end and stuffed with nylon wool,” said Donna. “We would run a media through the sample and the T cells would flow through and the B cells
O ver the years, research has advanced immensely. Transplants that would never have been feasible 35 years ago are happening all the time.”
Donna King Senior Laboratory Supervisor NJ Sharing Network “It was very different 35 years ago as the number of donors and transplants was very small compared to now,” said Donna. “At one point our Lab only had two technicians, for a brief time, and we were open weekdays from 8 a.m. to 4 p.m. Off hours were covered by on-call staff. Now, we have more than 20 technicians working around the clock.” Another critical change has been the development of innovative technologies to advance NJ Sharing Network’s life-saving mission. According to Donna, this has helped save more lives by reducing the time to process donor cases. “Years ago, it was standard
2018
2020
2020
2021
Next Generation Sequencing (NGS) high resolution compatibility testing is introduced
3D bioprinting using live cells can be used for tissue/ organ repair
Histogenomics assay enhanced to help predict graft function and reduce organ discard
Creation of organoids from stem cells can be used to test the effect of drugs on organ function Differentiating deceased donor adipose tissue stem
would adhere to the wool. The process could last hours. Now, we have magnetic beads that separate the cells quickly. We obviously do not use straws anymore.” Donna’s passion continues to be the driving force that motivates her to help the Transplant Laboratory team continue to ‘Transform Transplantology’ in the years ahead. Donna’s legacy of support for NJ Sharing Network’s life-saving mission has been passed on to her four children as they are all registered donors. Her oldest daughter, Jordan Vallejo, has also joined the Clinical team at NJ Sharing Network.
2022 cells into pancreatic islet cells (potential treatment for diabetes – T1D and T2D) Use of deceased donor stem cells to treat acute kidney injury
Automation of the CDC crossmatch using Cytation 7 C3d assay for antibody testing and identification of destructive antibodies Circle of Life 5
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Cover Story
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For 35 years, NJ Sharing Network has been saving and enhancing lives. NJ Sharing Network Milestones
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The following pages feature our donor heroes and their powerful stories of hope. Our dedicated partners and team members also share reflections on our past and visions for our journey ahead.
F e ing th
1987
1991
1992
1993
NJ Sharing Network is established with nine employees dedicated to our life-saving mission
Declaration of Death Act states “Brain death” is the neurological criteria from which to declare death
NJ MVC mandates organ donation information is included in the driver’s manual/written exam and on the back of driver’s license
Number of employees grows to 50
ALWAYS CARING FOR OTHERS The family, friends and coworkers of Freddy Diaz Villa all knew whenever they saw him, they would be greeted with his warm smile and usually a great big hug. While he loved music, cooking and basketball, his greatest joy in life came from helping others. On January 25, 2022, our world lost a special young man when Freddy passed away at the age of 23. “He was my life, and we are all in pain every day since he has been gone,” said Lucy Villa, Freddy’s mother. “We will remember him for being someone who thought about what others needed before what he needed in life.” Lucy recalls the countless times that Freddy would actively lend a helping hand to others. During his teenage years, Freddy spent his after-school hours at the medical office building where his mother worked as the Office Administrator. This healthcare environment furthered his passion for supporting those in need. “Freddy would put on gloves (pictured on right) and help our elderly patients into and out of the elevator in our office building,” said Lucy. “He wanted to be a part of the medical team in any way that he could. He even made a sign that he wore that read ‘Elevator Staff.’” Freddy soon began helping around the office in other ways, including scanning patient charts. After graduating from high school, Freddy attended UNIBE International College and became a Certified Medical Assistant (CMA). He quickly became a favorite among his coworkers and patients. “Even the cleaning services team loved Freddy,” said Lucy. “He would always take half of his breakfast and share it with them. He would tell me it was his way of showing
1995
1996
NJ Donor Enhancement Act enacted to increase the number of potential donors and facilitate the donor process
NJ Sharing Network is among the first OPOs to receive full accreditation from Association of Organ Procurement Organizations
“I treat my patients and their families as if they were my own family. I love being there for our donor families and helping them through the decision-making process.” Carla Lepis-Golightly, RN, Family Services Coordinator
Freddy Diaz Villa had a warm and caring spirit. Here Freddy shares a loving moment with his mom Lucy
them that he cared.” Freddy’s selfless nature extended beyond the medical office setting. Each time the family vacationed in Cuba and the Dominican Republic, he purchased personal care products, such as soap, shampoo, and toothpaste, to give to people on the streets near their hotels. “He reminded me that the local people in those cities did not have many of the basic items that we enjoy in the United States,” said Lucy. “It amazed me that he would always think that way and then take action to do something about it.” During Freddy’s final days in the hospital, Lucy and her family struggled with the decision on whether to donate his organs and tissue. Ultimately, Lucy realized that Freddy would want to give the gift of life as his final act of compassion to others. “I had a dream about Freddy, and a feeling came over me that he wanted to give to
Our staff grows to 100 to support increases in life-saving donations and transplants
Freddy’s gifts saved the lives of seven people. His liver saved a 6-month-old boy and a 35-year-old woman. His kidneys saved two boys, ages 9 and 16. His lungs saved two men, ages 63 and 77. His heart saved a 52-year-old man.
others now that his time was done here on Earth,” said Lucy. “I am glad that I followed that feeling. I know it would make Freddy happy to know that he helped others.” Carla Lepis-Golightly, RN, NJ Sharing Network Family Services Coordinator
1998
2001
2003
Uniform Anatomical Gift Act revised to regard all verifiable expressions of the donor's desire to make a gift as legal, binding, and irrevocable
New Jersey “Donate Life” specialty license plate for organ donation became available
Legislation enacted allowing for “organ donor” status on the NJ digital driver’s license
Circle of Life 7
shared it was an honor to support Lucy and her family. “I explained to Lucy that Freddy’s donation would offer love, light and hope for her and other families. Freddy’s legacy will live on as a donor hero,” said Carla. NJ Sharing Network, in collaboration with Englewood Hospital, honored Freddy with a special NJ Sharing Network flag raising ceremony. The flag remained raised through the weekend honoring his gifts and was then sent to Lucy and her family.
Forever in Our Hearts Jordan Herron, 19, of Jersey City was a caring young man with a bright future. His selfless nature was often seen in how he helped care for his younger sister, Isabella, who suffers from muscular dystrophy and epilepsy. Jordan had big dreams of becoming a firefighter to follow in the brave footsteps of his uncle, Jersey City Fire Department Captain Bryan Tullock. “From the time he was a little boy, Jordan always told me his goal in life was to help others in need,” said Tracey Tullock, Jordan’s mother. “He had a joyful smile and down-to-earth personality that everyone loved.” On July 20, 2019, an unthinkable tragedy occurred as senseless street violence claimed Jordan’s life. According to many neighborhood parents who were nearby during the shooting spree, Jordan was a hero as he yelled to others to hide behind parked cars for safety. “I loved him with all my heart, and our family has felt such an overwhelming loss,” said Tracey. “He was just in the wrong place at the wrong time.” A silver lining in this horrific story is that Jordan was a registered organ and tissue donor. His tissue donation has already enhanced the lives of 38 people from around the world. Jordan’s corneas were transplanted internationally, and his saphenous veins were transplanted in Alabama. His gifts of
2004
2008
First OPO to gather and honor the country’s Black transplant surgeons
NJ Hero Act mandates an online donor registry, donation education in public high schools, info in public institutions of higher learning and instruction in medical and
8 Circle of Life
has received from NJ Sharing Network betendons, skin and bones are also helping fore, during and after the donation process. others live healthier lives. “The entire NJ Sharing Network According to Tracey, she had spoken with team has always made Jordan about organ donation just two me feel that I am not years before he passed away. “We had a “I am inspired every day to support alone,” said Tracey. conversation about being an organ our donor families during “That’s what you donor while we were sitting at the their most difficult and painful need during tough MVC,” said Tracey. “He asked times. I have witnessed how times.” me if I checked the organ donor donation brings healing to families Tracey and her box, and I told him, ‘Absolutely as something positive can come out of a time of grief. Tracey helped Jordan’s family continue because mommy wants to legacy live on through his selfless to keep Jordan’s always help others – whatever I gifts. Jordan and all our donors are memory alive. can give, I will give.’” heroes.” Each July, they Tracey never knew if Jordan Natasha Rosa, plan to continue Donation Resource Coordinator to celebrate Jordan’s birthday with a barbecue. They also proudly wear bracelets and t-shirts they had made featuring blue and orange, Jordan’s favorite
Jordan Herron had a joyful smile and down-to-earth personality that everyone loved. Pictured here with his mom Tracey Tullock
decided to check the box until she was notified by Natasha Rosa, Donation Resource Coordinator at NJ Sharing Network, while Jordan was in the hospital. “I was so impressed and proud of Jordan,” said Tracey. “Natasha’s words helped ease my pain. Jordan knew it was the right thing to do, and I was honored and happy to follow his decision to give the gift of life to others. It was a humbling moment for me. As a parent, you often wonder if your children actually listen to you. Jordan showed me he was listening when he made the decision to register as a donor.” Tracey is also thankful for the support she
nursing schools The High School Heroes Program is established, educating and inspiring students by using the heroic donation story of
UNC mascot Jason Ray, whose generous organ donation saved the lives of four NJ residents
Jordan loved sports and enjoyed rooting for his favorite football team, the New York Giants
colors, and inscribed with “LL 23” to stand for “Long Live Jordan” with a tribute to Michael Jordan’s #23 jersey. Tracey also enjoys the weekends when she helps care for Jordan’s son, Kayden Jordan Herron, who was born just three months after Jordan passed away. “Isabella and I feel like Jordan is by our side, especially when Kayden is with us,” said Tracey. “It keeps our hearts going.
2013
2014
Only OPO to achieve 100% participation in hospital CEOs dedicating roses for the Donate Life Rose Parade Float
First Donation After Cardiac Death lung recovery Tissue donation increases a record 68% over the past three years
ENHANCING LIVES THROUGH TISSUE DONATION We proudly collaborate with our tissue partners to honor donated gifts, serve patients, and advance science and research to enhance more lives. ” Joseph S. Roth, President and CEO, NJ Sharing Network Heather Prutzman faced unbearable loss when her 25-year-old son Joseph Savage passed away due to a tragic motor vehicle accident in October 2017. Although Heather’s heart was shattered, it gave her peace to know that a special part of Joey will continue to live on thanks to his selfless decision to register as an organ and tissue donor. Since his death, Joey’s heart, two kidneys and liver donation has breathed new life into multiple people, and his corneas even brought the gift of sight back to two men. Over 120 additional recipients of bone, skin, and corneas received Joey’s tissue gifts thanks to the partnership between NJ Sharing Network and MTF Biologics. In 2019, Heather’s touching story took another amazing turn when she underwent a successful spine surgery that included two pieces of her son Joey’s donated bones that were a perfect match! Heather believes Joey gifted her the mobility in her back, knowing her love for riding and horses. “This was Joey’s way of saying ‘Keep going mom, I got your back, you got this,” said Heather. “I know that Joey is rallying around me so I will never be alone.”
Heather Prutzman and her son, Joseph (Joey) Savage
“Throughout our 35 year-long histories, our relationship with NJ Sharing Network has allowed us to honor the donated gifts of New Jersey tissue donor families and provide 10 million grafts to help patients globally. The impact of our partnership on the health and well-being of patients and their families worldwide is truly immeasurable.” Joe Yaccarino, President and CEO, MTF Biologics
Diane Hollingsworth, President and CEO of Eversight, leads one of NJ Sharing Network’s key partners in restoring sight and preventing blindness through the healing power of donation, transplantation and research. Diane also has a powerful personal connection to NJ Sharing Network’s mission. Thirty years ago, Diane’s kidneys failed during her third pregnancy, but she received a second chance at life thanks to a successful kidney transplant one year later. “It was a scary time in my life,” said Diane. “I was 33 years old,
“Together, NJ Sharing Network and Eversight are changing lives every day. I am grateful for the strong partnership. We are united in our shared mission to improve lives and make possible the precious gift of sight for donors, their families and cornea recipients.” Diane Hollingworth, President and CEO, Eversight married with two toddlers and one very ill baby who was born premature at 30 weeks because my kidneys were failing.” After giving birth, Diane began dialysis while her baby spent the next two months in the neonatal unit. Diane had a successful kidney transplant after six months on dialysis thanks to her mother, the living donor who gave her a second chance at life. The premature baby, Emily, is now 31 years old and engaged to be married. Diane’s living donor mother and her transplanted 86-year-old kidney are still going strong. “Having a life-saving transplant changes you,” said Diane. “My passion for donation led me to pursue a meaningful career in transplantation.”
2015
2016
2017
2018
NJ Sharing Network pilots the National Donate Life Registry, later adopted by the rest of the country
March is a record-breaking month with 82 organs transplanted
First Hepatitis C positive donor heart transplanted to Hepatitis C negative recipient
First HIV positive donor (Hope Act) More hearts than ever before (79) were transplanted from NJ donors
Innovative #SaveNJLives campaign promotes the number of patients waiting in New Jersey communities through branded pizza box and coffee sleeves distribution Circle of Life 9
SHARING LIFE… SHARING MEMORIES Finding Comfort During Loss On October 3, 2017, Janet Myer experienced unthinkable loss when her son, Shane, was tragically killed in a car accident on Route 80 while driving to work. Shane was only 21 years old, and he had already accomplished his goal of becoming a distinguished diesel mechanic and was a member of the Wyckoff Fire Department Protection Co. #1. Janet has found some sense of comfort in knowing that Shane’s organ and tissue donations have saved and enhanced the lives of many. “NJ Sharing Network has been a lifeline for me and my younger son, Brandon,” said Janet. “Virtual Advocacy Night is something I look forward to, although sometimes I can only type my story as I am unable to speak about the tragedy. We had no idea that Shane was a registered organ and tissue donor until after the car accident, and I had no idea what NJ Sharing Network was about. I have found peace and compassion through Advocacy Night. Volunteering for NJ Sharing Network is where I am meant to be.” For information about upcoming Advocacy Night events, visit NJSharingNetwork.org/volunteer.
Janet Myer, mother of Shane, whose selfless gifts touched the lives of over 70 people.
2019
2020
More organ donors in NJ than ever before (206)
Record high of 222 organ donors is achieved despite unprecedented transplant challenges and restrictions during the COVID-19 pandemic
10 Circle of Life
A Family’s Donation Connection The sudden and unexpected loss of Paula Rubenacker, 45, of Wayne, hurt the hearts of many in our local communities. The happily married mother of two was a popular School Social Worker and Guidance Counselor at Washington Elementary School in Wyckoff. While each day may now be a
Paula and Matt Rubenacker enjoyed vacation time with their daughters, Lea and Eryn
challenge for her husband Matt, he finds some strength in his family’s connection to organ and tissue donation. “Paula’s tragic passing comes with a great deal of sadness, but there is a ray of sunshine to brighten our story,” said Matt. “Paula’s life was spent helping others, and she was always incredibly supportive of organ donation. Through this tragedy, her gift of life is already helping others. With the help of the dedicated staff at NJ Sharing Network, Paula’s loss has given life and hope to others. It is hard to imagine a more loving, a more kind, or a more selfless act than this.” The Rubenacker family’s connection to organ donation and NJ Sharing Network dates back more than 20 years. Matt’s mother, Jackie, donated one of her kidneys to help save the life of Paula’s mother, Pat, who
enjoyed an additional 15 years of spending precious time with her family. NJ Sharing Network, in collaboration with St. Joseph’s Hospital, honored Paula with a special NJ Sharing Network flag raising ceremony. A Tradition of Giving Bobby Ring, President of Meyer & Depew, a community-based heating & cooling company in Kenilworth, has been a powerful advocate for organ and tissue donation for many decades. In 1984, Bobby donated one of his kidneys to save the life of his sister, Kathleen Ring-Allegra, who suffered from systemic lupus erythematosus, a rare disorder of the immune system. The successful transplant surgery gave Kathleen many additional years of life until she passed away in 1999. “Donating my kidney to my sister was a no brainer for me and we were a perfect match,” said Bobby. “To this day, I have had absolutely no negative consequences to my health due to my kidney donation.” In the years following the transplant, Bobby and Kathleen teamed up to spread awareness for NJ Sharing Network’s mission by giving dozens of presentations detailing their amazing story.
News article from a 1984 issue of The Courier News highlighting Bobby Ring’s kidney donation to his sister, Kathleen Ring-Allegra.
2021 The Immuno Bill passes to extend Medicare Part B coverage for the lifetime of the transplanted kidney
First person authorization reaches an all-time high as 32% of donors documented their legally binding gift
Highest number of livers ever recovered for transplant (151) in a single year
Facilitated NJ’s first DCD (Donation After Cardiac Death) heart recovery and transplant
Growing Together “My message that I continue to tell people is to encourage everyone to check the box and register as an organ and tissue donor,” said Bobby. “If I could give my kidney while I am alive, then it should be easy for everyone to give the gift of life to others after they pass away.” Bobby continues to generously support the Sharing Network Foundation through Meyer & Depew “Installation Donation” program that provides a financial contribution for each of its residential clients who have a new HVAC installed in their home.
Thanks to the generosity of our community, since 1988 the number of organ transplants and organ donors in New Jersey who have selflessly given the gift of life have both quadrupled. As we look ahead to the coming years, our goal is that no one dies while waiting for a life-saving transplant. 233
1988
2021 1097
It is often said that the miracle of organ donation and transplantation is one of the greatest achievements in the history of medicine. During NJ Sharing Network’s 35-year history, enormous strides have been made, but there are still many more lives to be saved and enhanced. Thanks to ongoing and cutting-edge developments, continuous improvement, and innovation, the future of transplantation has never looked better. NJ Sharing Network is prepared to lead the way with the continued support of our caring community. Be sure to stay connected with NJ Sharing Network on social media and in future issues of Circle of Life magazine for updates about key strategic initiatives, including the Simulation Training Center, expanded clinical staff resources to discuss donation with more families, and multicultural outreach efforts to raise awareness and build community trust. Have you been part of our history? Share your story at njsharingnetwork.org/ share-your-story/.
For the fourth consecutive year, awarded “Best Places to Work” in NJ by NJBIZ
324%
55
A FUTURE OF EXCITING POSSIBILITIES
An unprecedented number of organ donors (233) gave the gift of life
ORGAN DONORS
Joseph S. Roth awarded Champion of Diversity award by the NJ Chamber of Commerce and the African American Chamber of Commerce for #DonationNeedsDiversity initiative
TISSUE DONORS
427%
208
1988
2021 599
ORGANS TRANSPLANTED
325%
141 1988
2021
2022 First kidneys recovered and transplanted from a deceased COVID-19 positive donor
Our Facebook page surpasses 25,000 followers with nearly 150,000 post engagements and a reach of over 400,000 people annually
Staff increases to 209 employees to meet growing needs and advance life-saving mission Circle of Life 11
Raising Funds & Awareness
Our Foundation family is forever grateful to our contributors, partners and advocates, who have created a true culture of philanthropy to support our life-saving work.” — Elisse E. Glennon, Executive Director, Sharing Network Foundation
Be sure to check out the Sharing Network Foundation’s new social media channels and its re-branded website to get all the latest information on upcoming fundraising events and programs.
2021 ANNUAL REPORT
Foundation Milestones
To obtain a print copy, visit SharingNetworkFoundation.org or call 908-516-5566.
BUILDING A FOUNDATION OF SUPPORT
I
by funding projects and programs focused on: n 2005, a dedicated group of volunteers helped establish the Sharing Network Foundation • PUBLIC AWARENESS AND EDUCATION • to provide additional resources to support Special events and community outreach efforts NJ Sharing Network’s life-saving mission. These raise awareness and help dispel myths and visionary leaders could never have imagined the misconceptions. incredible impact the Foundation would make. • CLINICAL ADVANCEMENT • Newly created events and activities immediately Educational and training programs for clinical and began to build momentum thanks to the passion transplant laboratory team members and hospital and energy of those whose lives have been touched partners increase the number of transplants and by donation and transplantation. support efforts in stewarding the gift of life. A pivotal moment in the Foundation’s history • FAMILY SUPPORT • occurred in 2011 when staff members and volunteers Programs and resources for families of donors, took a bold step by organizing a 5K Celebration of Life recipients, patients waiting, living donors and event at NJ Sharing Network’s headquarters in New caregivers provide ways to celebrate life and honor Providence that united thousands of walkers, runners, the legacy of loved ones. volunteers and sponsors. That marked the beginning of Looking to the Future INNOVATION Family support and care The Foundation will continue its what would become one of the Garden State’s largest and Simulation HANDS-ON TRAINING successful journey in developing most-recognized charitable BEST PRACTICES Focused on the Future creative ways to unite our caring events. This event grew each community. A Capital Campaign year, and, in 2015, the 5K was recently launched to Celebration of Life surpassed support the development of a the $1 million mark in funds Training Center at NJ SAVING LIVES Multidisciplinary Simulation raised for the first time. Sharing Network headquarters. Teamwork CRITICAL RESPONSE Beyond its fundraising The Center will offer the most success, the 5K Celebration Improved Processes Time Management Realistic realistic simulator training of Life events have had possible to prepare clinical team Real World Scenarios Powerful Outcomes immeasurable impact on Latest Technologies Donor Management members to save more lives. It raising awareness in our will feature an intensive care unit local communities thanks to (ICU) patient room equipped social media and widespread news media coverage. with a bed, monitors, ventilator, cardiac resuscitation These signature events have also touched the lives of equipment cart, tubes, IV poles, mock medications, countless people across the donation and transplant and fluids. To learn more about this exciting project community. and for funding opportunities to help advance our Today, the Foundation plays an essential role in future growth, please contact our Foundation at powering NJ Sharing Network’s life-saving mission 908-516-5566 or foundation@sharingnetwork.org.
2005
2011
The Sharing Network Foundation is established to engage the community in philanthropic efforts
Inaugural 5K Celebration of Life yields over $450K; receives an international award for its innovative marketing strategies
12 Circle of Life
SIM LAB
The Landscape of Life Tribute Wall unveiled, recognizing those in whose honor or memory contributions were made
2013
2015
2016
Donation exhibit funded at Liberty Science Center
The 5K Celebration of Life raises over $1 million for the first time
Landscape of Life Meditation Garden opens as a special place for those whose lives have been touched by donation and transplantation
Funded a book series: Lily’s Little Life Lessons to teach to children about donation
T WAYS
ED! LV O
O
GET INV
enhancing lives through organ and tissue donation.
In honor of our 35th anniversary of saving and 1| REGISTER as an organ and tissue donor! Visit
NJSharingNetwork.org/Register or your local motor vehicle agency.
2| DISCUSS your decision to donate with your family and friends.
3| ENCOURAGE 35 friends or family members to register as donors.
4| WEAR a green “Donate Life” bracelet to show your support and help initiate conversations.
5| ATTEND an Advocacy Night to become a certified volunteer. Visit NJSharingNetwork.org/Events.
6| FOLLOW NJ Sharing Network on Facebook. 7| POST a link about NJ Sharing Network on your own Facebook page.
8| CONNECT with us on Instagram at @ NJSharingNetwork.
9| USE Twitter to alert your followers about what donation means to you.
15| PARTICIPATE in the 5K Celebration of Life on
May 15 in Long Branch and June 5 in New Providence. Visit SharingNetworkFoundation.org/5K.
16| SUPPORT our efforts with a $35 contribution to
our Foundation. Encourage family and friends to make a tax-deductible contribution too!
17| DISTRIBUTE green “Donate Life” bracelets at your workplace or in your community.
18| ARE you bilingual? Help us share our life-saving
create a donor awareness video.
11| CHECK out our videos on YouTube and share them on your social media pages. 12| FOLLOW NJ Sharing Network on Twitter @ NJSharing.
13| SHARE your story of hope at NJSharingNetwork. org/share-your-story/.
best share your story.
28| TAKE a NJ Sharing Network volunteer refresher course for the latest information. 29| SHARE your donation experience at your house of worship. Ask your faith leader to include donation messaging in electronic and print bulletins.
30| CONNECT with local police, fire, and
message in multicultural communities.
EMS departments to participate in our Legacy of Heroes Program.
19| JOIN your local Donate Life NJ Regional Group.
31| REQUEST a NJ Sharing Network banner at
Visit NJSharingNetwork.org/events/.
20| SHARE any events happening in your
community with us so that we may participate.
21| CONTACT your local high school to start a Donate Life Club, make donor awareness announcements, include a donation story in the school newspaper, or schedule an educational program for students.
22| CONNECT with area colleges about joining our College Outreach Initiative.
10| JOIN us on TikTok @NJSharingNetwork and
27| ATTEND speakers training to brush up on how to
info@njsharingnetwork.org. Take it with you when you travel, snap a photo, and share it at socialmedia@njsharingnetwork.org.
32| REQUEST sunflower seed packets at
info@njsharingnetwork.org. Plant the seeds and when they bloom, snap a photo, and share it at socialmedia@njsharingnetwork.org.
33| SHOW your spirit by wearing blue and green– the colors of donation.
23| PARTICIPATE in our College Scholarship Program
34| SPREAD the facts: more than 100,000 people are waiting for an organ transplant, including nearly 4,000 people in NJ.
24| HOST an information session for your fraternity,
35| KEEP spreading the word about the importance of organ and tissue donation!
if you are a high school senior who has been impacted by donation or advocate for donation.
sorority, or civic association.
25| SPREAD awareness on the road by purchasing a “Donate Life” NJ specialty license plate from the Motor Vehicle Commission. Visit www.state.nj.us/mvc/ vehicles/donorplate.htm.
For more information, to request materials, and to stay involved and connected throughout the year, visit NJSharingNetwork.org!
14| VISIT the Sharing Network Foundation’s Facebook page for fundraising events happening throughout the year.
26| GET a pulse on what others think about
2017
2018
2019
2021
2022
After raising nearly $2 million, a new Wall of Contributors is unveiled
The 20th Annual Golf Classic & Tennis Tournament is held
Program instituted to offer caregivers and the recently transplanted recipient a personalized care-package in the hospital
In partnership with Team Liberty, Sharing Network Foundation hosts the Transplant Games of America in New Jersey
The Foundation reaches a total of $5 Million in grants awarded in support of our life-saving mission and in partnership with named funds–Riley’s Dance, Hearts
donation by hosting a “Let’s Talk About It” event.
for Emma Partner Fund, Joseph D’Addio Fund, Missy’s Miracle Scholarship Fund, Betsy Niles Scholarship Fund, Jellybean’s Rainbow, and The Wave Set Circle of Life 13
NONPROFIT ORG U.S. Postage
691 Central Avenue New Providence, NJ 07974 800-742-7365 • 908-516-5400 NJSharingNetwork.org
WHO WE ARE
PAID Union, NJ
Permit No. 931
NJ Sharing Network is a non-profit, federally designated organ procurement organization (OPO) responsible for the recovery of organs and tissue for the nearly 4,000 New Jersey residents currently awaiting transplantation, and is part of the national recovery system, which is in place for the over 100,000 people on waiting lists. NJ Sharing Network is a designated OPO by UNOS; accredited by AOPO, ASHI, AATB and CAP; and registered with the FDA and NJ and NY State DOH. NJ Sharing Network is a member of Community Health Charities.
JERSEYGENEROSITY! Those of us who live or work in New Jersey have a lot to be proud of — our diverse communities, our melting pot of cultures, our amazing food and our beautiful beaches are just some of the most obvious highlights of the Garden State. But did you know that New Jersey is also one of the most giving states in the nation? • 2.7 million New Jerseyans are registered as organ and tissue donors!
• New Jersey ranks 5th in the nation on the Donate Life America National
NJ’S TOP 8 TOWNS FOR DONOR REGISTRATIONS IN 2021 Do you live or work in one of the top towns for donor registrations?
1. Trenton 3. Toms River 5. Edison 2. Jersey City 4. Brick 6. Montclair
SAY ‘YES’ AND BE A HERO!
7. Marlton 8. Newark
Donor Registry and 3rd in percent of state population in the National Donor Registry!
• New Jersey donor registration jumped 8.3% in 2021! New Jersey’s caring spirit is providing hope for the future.
DONOR REGISTRATION IS EASY!
A hero is selfless, generous in spirit, tries to help people and is admired for making noble decisions. Choosing to give the gift of life is one of the noblest decisions you can make. Be a hero and register as an organ and tissue donor and leave a legacy–not just for yourself but for your friends and loved ones to continue to honor.
CONNECT WITH US ON
/NJSharing
@NJSharingNetwork
@NJSharingNetwork
To register as an organ and tissue donor, visit NJSharingNetwork.org/Register or through the iPhone Health App, or at your local Motor Vehicle Agency. @NJSharing
NJ Sharing Network
NJSharingNetwork
Question or comments? Reach out to editor@NJSharingNetwork.org If you receive multiple magazines and would only like one or if you no longer wish to receive information from NJ Sharing Network, please call 908-516-5400.
