Getting Out There 2013 by Northern Advocate

GETTING

A GUIDE TO ‘GETTING OUT THERE’ FOR PEOPLE WITH DISABILITIES, OLDER PEOPLE AND THEIR FAMILIES.

July 2013

ms. Northland

Changing attitudes and behaviour towards disabled people

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GETTING

Contents

www.tiaho.org.nz

Tiaho Trust A Word from Jonny Wilkinson ..............................................4 Tiaho Profile............................................................................5

Alzheimers Plan for a New Facility ...........................................................6 Dealing with Alzheimers as best they can ...........................7

Arthritis Arthritis, it could surprise you! ..............................................8 Abby Jaques ..........................................................................9

Brain Injury The Silent Epidemic .............................................................10 Brain Injury Association .......................................................11

Deaf Aotearoa Deaf Awareness....................................................................12 Kylie Berry .............................................................................13

Down Syndrome The New Zealand Down Syndrome Association ...............14 Erin Smith..............................................................................15

Epilepsy Coping with Epilepsy ...........................................................16 James Robertson .................................................................17

Blindness The Royal New Zealand Foundation of the Blind .............18 Dorette Clements ................................................................19

CCS Disability Action About Us ...............................................................................20

Huntington’s Disease Huntingtons & Their Community Services .........................21

Motor Neurone Disease Motor Neurone Disease ......................................................22 Joe Campbell .......................................................................23

Multiple Sclerosis MS Northland .......................................................................24 Gael Nankivell ......................................................................25

NorthAble Out and About, Accessible to All .......................................26 NorthAble LYNKZ & Tori ......................................................27

3 Parent to Parent Parent to Parent Northland .................................................28 Lisa Reed...............................................................................29

Parkinson’s Parkinson’s Northland ..........................................................30 Susie Abraham .....................................................................31 Tiaho Accessibility Map ............................................ 32-33

Stroke We Work With Stroke Survivors ..........................................34 Kerei James ..........................................................................35

Whanau Ora Whanau Ora .........................................................................36

Asthma Northland Asthma Society ..................................................37

CLM Hydrotherapy Pool & Classes ....................................... 38-39

Riding for the Disabled ....................................................39 Age Concern .................................................................. 40-41 Bank Street Community Services ................................42 The Law & the Disabled...................................................43 Blomfield Special School ........................................... 44-45 Circus Kumarani ..................................................................46 Health Passport ..................................................................47 Lions Club with Forget-Me-Not....................................48 Idea Services ........................................................................49 Whakamana Hauora ..........................................................50 DPA ..........................................................................................52 Northlink Health .................................................................53 The Papermill Charitable Trust ......................................54 Cameron Leslie – Parafed Northland..........................55 Public Trust ...........................................................................56 Sailability Northland .........................................................57 Special Olympics ................................................................58 Special Needs Educational Resource Library ..........59 Spectrum Care – Respite & Community Support ..60 TLC4U2...................................................................................61 Tiaho Quick Reference Guide .................................. 62-63 Mental Illness .......................................................................64

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GETTING

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Getting Out There A word from Jonny Wilkinson, CEO Tiaho Trust

o coin a true Northland phrase, I am absolutely rapt about this resource which the Northern Advocate have produced for the second time. The first ‘Getting Out There’ last year underpinned a new approach to disability services and supports. It puts individuals and their families in the driving seat. Choosing what services they want to use, where they want to go and what they want to do. This second edition is bigger, better and further reaching.

‘Getting Out There’ represents how disabled and older people are increasingly taking their rightful place in their communities. They are accessing services, purchasing goods and generally enjoying life. In this edition of ‘Getting Out There’ you will find a smorgasbord of services and merchandise available for people with disabilities from aqua aerobics to tourist attractions. I believe that this is the decade that disabled people will come to the forefront and take their rightful place in New Zealand society, not only by participating and being included in their communities but by adding real value. We have all heard of the “baby boomer” bulge in our demographics. Forty-five percent of people over the age of 65 have an impairment in one way or another. This means that a larger portion of our population will have specific needs that central government, local government and the market place will need to cater for. The photo we have used on the cover page of this supplement depicts the diverse range of people that are

showcased in this publication. You will see that some of the people in this photo don’t appear to have a disability at all. I guess that’s the nature of having an impairment, one doesn’t really notice that one is disabled until they come up against a barrier whether it be physical, societal, attitudinal or community based. I hope you will embrace the concept of ‘Getting Out There’; get out there and use the services you are entitled to, get out there and see fabulous accessible places in Northland, get out there and be seen, get out there and be valued! Jonny Ground Floor Tai Tokerau Maori Association Board Building 3 - 5 Hunt Street / PO Box 374 Whangarei Phone: 09 430 3406 Free phone: 0800 430 3406 Fax: 09 438 1679 Email: info@tiaho.org.nz Web: http://www.tiaho.org.nz

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GETTING

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Tiaho Profile

iaho Association is a disabled led organisation that is proactive in providing advice, education and support to develop communities that are inclusive of disabled people and values their contribution to the community of Northland. We empower the Northland community by promoting disabled people as valued citizens who contribute, participate and add to the diversity of New Zealand society. The collaborative approach Tiaho Association adopts in all its undertakings ensures that disabled people are leaders and participants in the disability sector as well as mainstream society. In Northland, there are a range of organisations providing a Disability Information Advisory Service (DIAS Collective) about a specific disability, or disability in general and how it impacts

on the everyday life of a person and their family/whanau. Some of these organisations provide a service to one region while others provide disability information through a national network with branches and local contacts. The organisations included in this supplement are part of the â&#x20AC;&#x2DC;Northland DIAS Collectiveâ&#x20AC;&#x2122; who provides disability information, advice and support about a specific disability to people in Northland. Tiaho Association works alongside the DIAS Collective providers in the disability area to provide practical, culturally appropriate, quality services aimed at improving the wellbeing of disabled people within Northland. We also support these organisations by helping to improve the access to and utilization of their information and services throughout the region.

We have a representative role on a range of local government and agency committees/panels in Northland to ensure that the disabled community has input into the services that effect them and act as a conduit between these committees/panels and the disabled community in Northland. Our website (www.tiaho.org.nz) and our Facebook page provide the Northland community with current news and information relating to disability. Events and seminars that the DIAS Collective hosts are also kept updated and publicised. To educate and create discussion around disability issues, you can make a comment on any articles posted. Tiaho Association also provides specialist training to both the public and private sector on how to provide exceptional service to disabled and mature service users.

GETTING

www.tiaho.org.nz

Alzheimers

Plan for a New Facility

he Alzheimers Society Northland Incorporated grew from the work of a dedicated group of carers in 1985. It wasn’t until 1991 that we had our first paid staff member and, with the help of the District Health Board, opened an office in the Old Town Hall. In 1998 we had already outgrown these offices and we purchased and moved into our current premises at 321 Western Hills Drive. In 2013 we find ourselves in a similar position having outgrown our building again. Because of three amazing gifts from Northlanders and some good

stigma surrounding dementia. Raising community awareness provides the opportunity for people to access our services to learn coping strategies to maintain their safety, autonomy, dignity and well-being. This reduces the incidence of crisis situations and helps to de-stigmatise the disease enabling people with dementia to live in their own home and an inclusive society. There are many published findings to support the fact that keeping people at home assists a faster recovery because of familiar surroundings and with dementia this is even more important as change is confusing and upsetting. Most people are aware of our ageing population and statistics show that the number of people affected by dementia will at the very least, double over the next 20 years.

financial planning by our Alzheimers Board we are in a position that we going ahead with a new purpose built facility on Corks Road in Tikipunga. A 3,000m2 section was purchased from the Tikipunga Children’s Home Association and with the support of local residents, council consents have been obtained and building will start towards the end of August with a completion date Mid April 2014. The building will accommodate offices, training rooms and more importantly future proofs our day care activities for many years to come. We are pleased that we are able to offer complementary office space to the Neurological Foundation who will, from next year, have a person based in Whangarei. A significant part of our work in communities is raising awareness, increasing education and reducing

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GETTING

Alzheimers

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Dealing with Alzheimers as best they can

s is the disease itself, learning to live with alzheimers is progressive. Mary*, whose husband Scott* has alzheimers, describes living with it for a while and thinking something wasn’t quite right - then it hit her one day that something was really wrong. “It’s one thing to wonder, but when the specialist looks you in the eye and names the problem, that was just awful.” The worst thing for Scott was being told he could no longer drive; the loss of his independence and in their mutual recreation - “that was a shocker”. The first year was one of fear and frustration, and learning how to deal with a new situation.

“You have to give up doing some things you love, and you can lose friends,” Mary said. “I think they find it uncomfortable. You don’t tell people at first because there’s a lot of stigma still involved.” Eventually Mary got a reluctant Scott along to the Alzheimers Society ... and Alignment everything became much Mag and easier. “They were wonderful. I Battery needs would say to anyone dealing come see the with this, go along there. The sad thing is that so many friendly staff people don’t and they’re at Tyrepower missing out on such a lot.” One thing the Alzheimers Support Group taught her is OPENING HOURS that it’s still possible. *To respect Scott’s • Monday to Friday privacy, the couple’s 7.30am to 5pm names have been changed. • Saturday 7.30am - 1pm.

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GETTING

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Arthritis

Arthritis, it could surprise you!

rthritis is New Zealand’s leading cause of disability. It can occur to anyone at any age. There are 530,000 New Zealanders living with arthritis, including a thousand children. While it is certainly true that many older people have arthritis, it is completely misleading to think of arthritis as being an old person’s disease. There are children in New Zealand who are taking chemotherapy drugs, not because they have cancer, but because they have arthritis. The word ‘arthritis’ means ‘inflammation of the joint’. Swelling, redness, heat and pain are the signs of inflammation. The word ‘arthritis’ is used to cover diseases that affect the joints and can also involve tendons, muscles and the bones. And there are over 140 different types of arthritis, the most common being osteoarthritis, gout and rheumatoid arthritis. Arthritis New Zealand is the national organisation focussed on raising awareness of the more than 140 different forms of arthritis, advocating

for those with the condition, and providing advice and support. It offers a range of services designed to assist and support people living with arthritis and its team of arthritis educators provide advice, education, and upto-date information on how to selfmanage the condition including physical activity, joint protection, medications and complementary treatments and products. Arthritis New Zealand also runs a children’s camp, and children from Northland were funded to attend the most recent one. In Northland, there are support groups that meet regularly, water based exercise classes, clinics, seminars and other events. Sue Baker, Arthritis New Zealand’s Regional Coordinator will be able to tell you more about what is happening locally. You can phone her on 09 459 6100. To speak with an Arthritis Educator, phone Arthritis New Zealand on 0800 663 463. Or visit www.arthritis.org.nz. Arthritis, it could surprise you.

Kaitaia Kaitaia support group Meets on the 2nd Saturday of each month. Phone Heather on 021 167 2767 for further information.

Kerikeri Kerikeri support group Meets on the 4th Thursday of each month. Email Heather at lakeviewwatea@slingshot.co.nz for further information.

Whangarei 20+ support group Meets on the first Saturday of every month. Email Maree at 20plussupportgroup@hotmail. co.nz for further information.

Sjogrens / lupus support group Meets on the 1st Wednesday of each month. Email Leanne at sjogrenslupusgroup@gmail.com for further information.

Do you or someone you know have arthritis? Over 530,000 New Zealanders are living with arthritis. For further information, phone 0800 663 463. Or visit our website www.arthritis.org.nz

Arthritis, it could surprise you.

Fibromyalgia support group Meets bi-monthly on the 3rd Tuesday. Email Lee at fibro.whangarei@live.com for further information.

Whangarei Hydrotherapy Support group Email whg.hydroclass@gmail.com for further information.

“

GETTING

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Arthritis Abby Jaques Philippa Mannagh

I don’t want to feel miserable,” says Abby who doesn’t like to talk about it. At night she sleeps in splints to ease the pain in her wrists. This being the worst part for Abby as she loves colouring in and writing stories but after a few minutes she needs to give her hands and arms a rest. It hasn’t stopped Abby however, who has not let life stand still. She recently achieved fourth in her school cross country, stuck out ballet lessons and loves to run and jump despite the constant pain. “I give her so much credit,” says Sarah, “I leave

“I

t hurts in my wrists the most,” says seven-yearold Abby Jaques who was diagnosed with Juvenile Idiopathic Arthritis at the age of two. JIA is an autoimmune disease, which means that the body’s immune system mistakes a normal part of the body for something foreign (like an infection), and starts attacking the body itself. Her mother, Sarah King knew something was wrong when Abby started limping. This then turned into a swollen knee, ankle and big toe until she couldn’t walk in the mornings. After pushing the doctors for answers over the span of three months, even taking them video footage, there was finally an answer to Abby’s pain when a test that was missed at the beginning came through positive. Looking at Abby, you would never tell. Sarah chooses to encourage her in fitness and exercise as it helps the JIA more than hindering it. “The mornings are the hardest,” says Sarah. Without the current treatment she undertakes, it may be near impossible for her to even walk, she is one brave little girl. When questioned about her arthritis, a shy reply follows, “I don’t want it anymore.

it up to her to tell me if she has had enough.” Sarah and Abby have recently written a book about her journey in hope they can get it published and create a greater awareness of the condition. It also helps others understand Abby and children like her. “We are doing it because there are no other books around and there are different types of arthritis out there.” The beautiful and

personal book follows her journey, the highs and lows and the reality that is Abby’s life. One of the hardest things Sarah finds is the lack of understanding out there and because there is no physical sign like a cast, kids don’t get why Abby needs to rest sometimes or that she is in pain. Once they have read the book, they understand more, which helps how Abby is treated in the schoolyard because they are informed. It is hard medicine that keeps Abby moving. Twice a week she is injected with Etanercept to ease her joints and lives on ibuprofen on a daily basis. Her blood is checked every 6-8 weeks to check the state of her liver from all the drugs and once or twice a year a hospital visit is made where her entire body is pumped with steroids. Abby has also been on the anti cancer drug Methotrexate for the last five years which gives her unpleasant side effects and wipes out her immune system making her susceptible to serious illness. One of the most worrying aspects for Sarah is all of the drugs involved and how they may affect these kids at a later age, as no one knows yet. Support systems are crucial for Sarah who says the annual Arthritis camps are fantastic and offer a chance to talk to many people who are going through the same thing. Sarah is also the Northland co-ordinator for the Kids With Arthritis New Zealand initiative that get families together for support and friendship or even just a contact for people to ring. “People need to know we are here,” she says, “and that their kid is not the only kid with this.” Currently there is a group of five families who are in close contact but Sarah is aware there are many more out there in Whangarei. You can contact Sarah on 021931811 or email: ntl.kwanz@hotmail.co.nz

GETTING

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Brain Injury

The Silent Epidemic

rain injury is often called the `silent epidemic’ and referred to as a `hidden injury’ as more often than not there are no outwardly visible changes to a person after a brain injury.

However, a brain injury can have life changing results for both the injured person and their family and whanau, that may lead to loss of careers, businesses and at times result in family fracture. After a brain injury, life can become confusing and difficult to navigate and understand for those affected. Brain Injury Northland provides safe, barrier free access to support for both individuals who have been injured and their families. In New Zealand brain injuries are categorised into Traumatic Brain Injury (TBI) and Acquired Brain Injury (ABI). A traumatic Brain Injury results from a sudden impact to the head. Common causes include motor vehicle crashes, violence, falls and sporting injuries. Acquired Brain Injury occurs as a result of health related events such as strokes, infections such as meningitis, brain tumours and neurotoxic disorders. Chemical brain injury occurs as a result of poisoning by drugs, alcohol, gases,

solvents and pesticides. Typical difficulties experienced by a person after a brain injury are: memory issues, fatigue, sensory impairment, balance problems, but the most challenging issue is that of Cognitive Impairment which affects the ability to think, concentrate, formulate ideas, reason and remember. Brain Injury Northland was established in 1998 as an Incorporated Society and is a Registered Charity. The organisation struggles for funding and relies totally on grants and donations and its future is currently under threat. Currently the organisation has one liaison officer covering an area from Wellsford to Cape Reinga. Our focus is on supporting clients and their families and whanau who have suffered a brain injury. We offer information and education for people with brain injuries and their families so that they can better understand the implications and effects of the injury.

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GETTING

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Brain Injury

Brain Injury Association

still improving eight years later. That’s to do with attitude and dogged determination, he says. “I’m stubborn and I’ve become even more stubborn.” Although he admits there are still deficits with short term memory and concentration, he’s back working and living independently, and completed a half marathon to raise $4000 for the Brain Injury Association. The Association has been very useful for Ken through the various stages of his rehabilitation. He points out that at the beginning, it was more use for family than for him. “As the injured person you’re on your own foggy world and can barely tie your shoelaces.” When that stage passed, though, he found it helpful to talk things through with people and get tips on how to do things. “The Association is still very useful for sorting things like ACC,” he says. “They know what everything means, what comes

yachting accident in 2005 seemed as if it would shatter Ken Williams’ life for ever ….. but it

didn’t. That’s not to say, however, that it didn’t have an enormous impact on the then 26 year old, who describes it as being “tumbled into a completely new lifestyle.” That lifestyle was one in which Ken, previously acknowledged as a high achiever, could not hold a conversation, remember something that happened ten minutes ago, live independently, or walk any further than the letterbox. “At the time of the accident we were doing the 10,000 steps campaign at work to get people moving, and I was clocking 22,000 steps a day. That’s how active I was,” he says. After the accident, people told Ken that he would continue to recover for two years, and that would be as much as he could expect. But it hasn’t been the case, and he’s

Tauranga Tin Man 2012, his first triathlon. next, what went before.” His best advice for getting back to normal life is to “get on with it, and find closure.” “I did a half iron man recently,” he says, “That was mine.”

Ken went through the Annapurna Circuit in 2012.

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GETTING

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Deaf Awareness

Deaf Aotearoa

eaf Aotearoa’s Northern Office works with more than 150 deaf and hearing impaired people from Wellsford to Kaitaia and coast to coast. Deaf Aotearoa is the national service provider for Deaf people in New Zealand, working with Deaf communities and providing information and resources on a range of services. In Northland, Deaf Aotearoa is located at 1/A Deveron St, Whangarei. The office includes a drop-in centre and computer/ internet facilities for Deaf community members to use – including the Video Relay Interpreting service. Throughout Northland, Deaf Aotearoa’s Community Relations Officer works with the local Deaf and hearing communities and is the main source of contact for the local Deaf community. Deaf Aotearoa’s Service Coordinators work with Deaf people, and their families, to identify and coordinate services to meet their specific needs, including: • Accessing specialist equipment to make life easier – eg baby cry alert, flashing

doorbell, smoke alarms and clocks • Connecting Deaf community members with the right people for information and services – housing, legal, finance, health, education etc. • Communication – understanding documents, making phone calls, booking interpreters • Life direction – working with Deaf people and their families to develop plans and identify goals. Deaf Aotearoa’s Employment Consultants work with Deaf people to find the right employment and offer a range of services including: • Cover letter and CV preparation • Building confidence and self esteem –learning career goals and matching the right job with interests, skills and experience • Preparing for interviews • Job searching ideas • Accompanying a Deaf person to an interview • Job and training fund applications • Ongoing communication while in employment • Supporting employers to ensure hiring a Deaf person as straightforward as possible • Assisting with booking interpreters for meetings and arranging specialised equipment The organisation also offers Deaf Awareness courses - Think. Deaf.Discover

and Think. Sign. Connect. These targeted courses are offered to businesses and organisations around the country, teaching New Zealanders to better understand the Deaf community and learn NZSL to improve communication and access for Deaf people. For Deaf youth, Deaf Aotearoa runs the Magnet Deaf Youth Leadership and Transition Programmes, which are designed to grow, inspire and develop positive Deaf identity whilst transitioning youth, from school into further education, training or employment. Deaf Aotearoa also works closely with government agencies, other not-for-profit organisations and the corporate sector to increase awareness of Deaf people’s lives, promote New Zealand Sign Language and strengthen the rights of Deaf people. Deaf Aotearoa is a Disabled Person’s Organisations and the New Zealand representative for the World Federation of the Deaf, the international body for Deaf people. To help raise awareness, promote New Zealand Sign Language and celebrate achievements, each May Deaf Aotearoa organises NZSL Week and the NZSL In Action Awards. Please contact us if you would like to receive local newsletters, be involved in events or programmes in Northland or if you have an issue we can help with. Please contact the office on (09) 437 2022 or text 021641178 for advice and help or visit www.deaf.org.nz to find out more.

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Deaf Awareness

Kylie Berry

ylie Berry was about five years old when she became aware that there was a difference between her family and others. Kylie, her parents and her three siblings are all deaf, and she grew up signing until she went to a mainstream school in 2007. Realising she had to make a choice of whether or not to learn to communicate with hearing people, she learned to speak. “I had no friends, so I had to overcame that and get used to hearing people. I can make new friends with hearing people nowadays,” she says. “I love partying and outings so I enjoy socialising with both deaf and hearing people. Not many people can do that.” Now in her 20s, Kylie has met many challenges, and she’s outspoken on the difficulties faced by those who are deaf. Being told “no, you can’t work because you’re deaf” is one comment that makes her really furious, and she’s

already disproved it, getting a job after leaving school, and going flatting with friends. Having recently moved to Whangarei she’s determined to find another fulltime job, and lists it as one of her major challenges in the immediate future. “I have an updated CV and I’m looking for a job, so call me,” she says emphatically. For Kylie, finding work involves compromise. She always wanted to go to university but has acknowledged that it is too difficult. “Compromise! Always the interpreters!” she says. “I have to get funding for the interpreters for training and careers and it’s not easy because I will run out of funding before I’ve completed the study. This is a big problem and it compromises my study opportunities unfairly.” More funding is something Kylie would like to see in place for deaf people in New Zealand. “I want good

funding for interpreters in training and study, and in the workplace.” What has made her life somewhat easier is Deaf Aotearoa. She first accessed the organisations’s services about six years ago in Auckland when she was looking for support in finding a job, and in getting interpreters organised for interviews and appointments. Now she’s living in Whangarei and working with the organisation here. Ask how the move is working out for her and she replies with the town’s slogan: “Love it here.”

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Down Syndrome

The New Zealand Down Syndrome Association

he New Zealand Down Syndrome Association is a family/whanau driven organisation for people whose lives have been changed by Down Syndrome. We provide support and information to the families/whanau that have a new baby born with Down Syndrome. We visit the new families in the hospital or in their own home. The NZDSA has produced a New Parent information pack and DVD which is given out at the time of visit. We also promote the participation of people with Down Syndrome in their community and provide support and information to our existing families/ extended family members.

With the familyâ&#x20AC;&#x2122;s permission we can link them to another family in their own area to provide them with extra support. We run a support meeting in Whangarei, please contact us for more information about this meeting.

Contact details Address: Kara Rd, RD9, Whangarei Telephone/Fax: 09 434 6723 Freephone: 0800 693 724 (press 3) Email Address: national.coordinator@nzdsa.org.nz Website Address: tiaho.org.nz/ downâ&#x20AC;&#x201D;syndromenzdsa.org.nz

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Down Syndrome

Northland Down Syndrome Association

e provide support and information to the families/ whanau that have a new baby born with Down Syndrome. We visit the new families in the hospital or in their own home. The NZDSA has produced a New Parent information pack and DVD which is given out at the time of visit. We also promote the participation of people with Down Syndrome in their community and provide support and information to our existing families/extended family members. With the family’s permission we can link them to another family in their own area to provide them with extra support. We run a support meeting in Whangarei, please contact us for more information about this meeting.

Bev Smith

hen Bev Smith had her first child 29 years ago, she had not the slightest indication that Down Syndrome was a possibility. She was young, and there was no reason to suppose this would happen. In those days there was nobody to talk to about it and anyway, she admits, she didn’t want to talk about it. “I hid from it,” she says. “I remember we used to go out with the dog and walk for miles and it was a case of putting the right expression on your face and going out to face the world.” Now there is help and support from those with Down Syndrome and their families, partly thanks to Bev and a group of other parents who started a support group in Northland when Erin was small. “Then we met someone else with a little girl, and others of similar ages, we went to Auckland and met people there who were getting the association together – and we’ve been members all this time.” Bev is full of praise for association, which offers new parent support through trained support parents, a national coordinator, regional groups and activities throughout thirteen centres, individual support and advocacy, a newsletter, info packs and a website www.nzdsa.org.nz. Erin is on the local committee and is a member of the Strive Team for Down Syndrome, a self advocacy leadership group. She works at the Northland District Health Board (NDHB) and earlier this year was one of three young people to receive an achievement award from the New Zealand Down Syndrome Association. “Erin is a really busy person,” Bev says.” She adds that thanks to Erin, the family has evolved differently. “We’re way more broad-minded, better balanced and more outgoing than we would have been,” she says. “We had no choice, and now I can’t imagine anything being any other way.”

Northland Down Syndrome Support Group Main Functions: • Support and information • New parent support • Resource material • Monthly meetings Contact Details: Kathryn Sadgrove Kara Road, RD 9, Whangarei Phone 09 434 6723 Freehome 0800 693 724 (press 3) national.coordinator@nzdsa.org.nz www.nzdsa.org.nz www.tiaho.org.nz/down_syndrome

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Epilepsy

Coping with Epilepsy

inding out that you or a family member has epilepsy can come as a shock because of commonly held misconceptions about this condition. Epilepsy has a tendency to produce recurrent seizures. While it lasts, a seizure affects how a person’s brain works. That’s why a person can suddenly experience uncontrolled body movements, unusual sensations, or changes in behaviour or awareness. Epilepsy is a neurological condition and is treated medically however there are ways to improve seizure control by being aware of lifestyle triggers. In many cases lifestyle changes can be made to minimise the risk of a seizure. The person with epilepsy has to cope with many issues, for example, difficulty with memory and learning. Stress can affect family relationships. Stigma can lead to social isolation and employer prejudice can result in unemployment. Falls caused by seizures can result in injury.

A range of people including a person’s family, doctor, specialist, and an Epilepsy New Zealand Field Officer can help someone to address the issues that face them. The Field Officer can work with a person to prevent epilepsy undermining their self esteem. They will provide information about triggers and lifestyle management, medication, seizure management and first aid. They will help address employment issues such as whether or not to disclose and driving regulations. They can assist the person to communicate successfully with their teacher, employer, other agencies or doctor. The goal of working with an Epilepsy New Zealand Field Officer is for the person with epilepsy to manage their condition well and become seizure free. To contact Margaret, Epilepsy New Zealand’s Northland Field Officer, call 09 4385498, 0800 20 21 22 or email northland@epilepsy.org.nz.

This publication has been proudly brought to you by the Northern Advocate & Tiaho Trust.

GE TT IN G

A GUIDE TO ‘GETTING OUT THERE’ FOR PEOPLE WITH DISABILITIES, OLDER PEOPLE AND THEIR FAMILIES.

For any information in regards to this booklet, or to secure your spot for next year’s edition, contact Jonny Wilkinson at Tiaho Trust: jonny@tiaho.org.nz or Jan Hewitt at the Northern Advocate: jan.hewitt@northernadvocate.co.nz July 2013

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Epilepsy

James Robertson

ames Robertson was having plenty of fun when he was in his mid teens – hanging out with his mates, and going to a lot of parties, like any typical teen. He had his first seizure at the age of 16 after celebrating a mate’s 17th birthday, and although it came as a huge shock, it didn’t alter his lifestyle. “I know my seizures are linked to alcohol, unfortunately I was my own worst enemy for a very long time. I carried on that lifestyle until I was 26, and at that point I realised I was sick of my epilepsy and alcohol having such a big effect on my life”. James saw the people around him growing up, getting married and buying houses, while he was working to keep up his lifestyle. “It soon hit home that I couldn’t live this way forever and let my epilepsy rule my life.” James was in Perth at the time, and he decided to come back to New Zealand and sort out his health. He arrived home at the beginning of this year, moved in with his Mum and began the work of changing his unhealthy lifestyle, by starting to look after his health, and begin to plan for the future “I’ve been doing all my EEG’s and CAT scans, and have decided that this year is going to be about me and my health, and benefitting from a positive lifestyle change that will endeavour to stop my frequent seizures”. James accepts that getting his life sorted will be an ongoing process and it isn’t going to change overnight. “I know now, that it’s going to take a lot longer than I thought, but it is all coming together”, he says. “I can’t say I’m totally happy right now, and I do realise that it will be an ongoing process, but I am getting a lot better, and I feel both healthier and safer now.” “I went to an epilepsy organization in Perth, but unfortunately they weren’t very helpful. When I got back to New Zealand I decided to make use of every resource I could find. Epilepsy NZ in Whangarei has ever since, been a great support and a fantastic network of people and resources, that are very helpful.”

James is hopeful that by speaking out about his epilepsy, and how he became lost, confused and really unhappy and the steps he has taken to address issues, that it will encourage others who have epilepsy to seek the support and

resources that are available, and work towards finding a balance in their lives. “It’d be good to help just one person, and to make a positive difference in their life,” he says.

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Blindness

The Royal New Zealand Foundation of the Blind

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he RNZFB is New Zealand’s main provider of sight-loss habilitation and rehabilitation services to people who are blind or have low vision. Our vision is to empower and support blind people and those with low vision to ensure they have the same opportunities and choices as everybody else. We now have more than 11,500 members and each year nearly 1200 New Zealanders who have become blind or experienced serious sight loss register as Foundation members. For more than 120 years, we have connected members to expert staff and their peers, to gain the training, tools and tips they need to deal with blindness and achieve their potential. We equip people who are blind or have low vision with a wide range of services, including counselling, adaptive daily living skills, adaptive technology, guide dogs and other mobility techniques and employment services to overcome the barriers they face in participating in society and leading independent lives.

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We also provide recreation services. We offer business services around producing resources in accessible format, consulting on website accessibility, how to make a physical environment more accessible and employer and staff training. In order to provide independence and support to blind people and those with low vision across the country, the RNZFB needs approximately $28 million per year, of which we need to fundraise about 60 per cent. Our two most significant annual appeals include Red Puppy Appeal which took place from April 5 to 6, and Blind Week which we will be celebrating from October 28 to November 2 this year. RNZFB currently employs around 300 staff throughout the country; we have around 2000 volunteers who regularly give their time; and we work proactively with other sight loss and disability organisations in New Zealand and across the world. We were established under the Royal New Zealand Foundation of the Blind Act 2002. A key point of the Act is that we are led by our members. This is why the “of” in the Royal New Zealand Foundation of the Blind is so important. For more information please refer to the RNZFB website: http://www.rnzfb.org.nz.

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Blindness

Dorette Clements read a thick artline pen but I can’t now, so I have had to learn to record things rather than write them down. That’s been a challenge because I was always a visual person.” Now 55, Dorette is no longer in regular employment but she does run a support group for the foundation, working with other members and helping them to find the support they need. Both her experience and her can-do

attitude make her well suited to the job. “At the beginning you go through the “why me” stage, but then you realise that you’re just going to have to change, meet the challenge, and get on with it.”

Dorette and her faithful companion in black, Patty

Above The Lawn progressively worse over time, particularly in the last five years. Learning to cope with this has been about adapting to her limitations and accepting change, and she’s keen to emphasise that it’s simply a learning curve. “I don’t look upon it as a difficulty, just as a change in my way of life.” That’s meant learning new skills such as using a cane, working with Paddy, learning to do the same activities, such as using the oven, safely, and adapting to technology like computers and recorders “Technology has made a big difference to me,” she says. “I used to be able to

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t might be difficult for most people to find any positives in progressive visual loss, but Dorette Clements has a couple of examples guaranteed to raise a smile. She’s perfectly happy not to have to drive a car any longer and she doesn’t miss it at all. And Paddy, her guide dog, is a huge plus. “I was always a cat person,” she says, “but Paddy does me very well. He’s so easy to look after, and he’s good company. He gets me to places I need to go in half the time and I don’t have to concentrate as hard as I used to on where I’m going.” Dorette’s visual disability is genetic, and it has become

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CCS Disability Action

About Us

CS Disability Action is a nationwide organisation committed to creating a better future for people with disabilities. Our philosophy centres on ‘Including All People’. We are committed to a flexible partnership approach, our ‘Supported Lifestyles’ philosophy. This means we don’t claim to be the expert in anyone’s needs – our support services are certainly not about ticking boxes. Instead, we tailor our information, advocacy and direct support to allow people with a disability to realise their vision for themselves, however that may look.

What We Can Offer We believe that all people have the right to be included in the fabric of their local communities and enjoy the same rights and range of opportunities that every New Zealander might expect. Our range of services include: Supporting Children’s Right to an Education Our Community Support Coordinators provide advocacy and support to remove any barriers to ensure access to the quality education of your choosing. Supporting Families of Young Children We support parents to look towards the future and realise the dreams and aspirations you have for your child. We

also support these children’s rights, which are the same as all children. Transition We provide ongoing support, information and for those young people preparing to leave school and head into further study or employment. Youth Development Team We offer a dedicated youth team to support you to reach your aspirations. They offer tailored support with education, employment and can connect you with friends, youth groups and your community. Supported Employment and Community Participation This service supports people with a disability to access paid and sustainable employment by providing individualised support for potential employees and employers. We also can support you to access leisure opportunities or explore further studies. Supported Independent Living We work in partnership with disabled people to support them to lead independent lives. We provide in-home support and also support people to transition from residential care out into their own home. Very High Needs Services Our ongoing vocational support services enable people of all abilities to participate in an individualised programme that could include training, work or community activities.

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Respite Care To enable families to remain connected we offer respite support. A range of options are designed to provide a break for families and provide a positive and rewarding experience for your child. Mobility Parking We administer the mobility parking service in Northland, supporting people to park in accessible spaces in the community. How Can You Access our Services? Our services are free and can be accessed through self-referral, a referral by a family member or an agency such as the NorthAble Needs Assessment Service Coordination. We understand it can feel challenging to access good information. Get in touch and discuss whether we are a good fit for you and your family. e northland@ccsdisabilityaction.org.nz p 0800 227 000 or 09 437 1899 If you’d like to learn more about CCS Disability Action you’ll find further information on our values, services and strategic priorities on our website www.Northern.ccsDisabilityAction.org.nz

THOMAS AGNEW WITH HIS CO WORKER IAN KEYS AT RD WHANGAREI Thomas has spent the past nine months doing work experience at RD1, while studying retail. “I’ve loved my job at RD1 and have learnt heaps from the team, but I’m now looking for a new job, especially if it’s paid” he says. If you have any work opportunities for Thomas or others, contact us.

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Huntington’s Disease

Huntington’s & Their Community Services Our Services The Huntington’s Disease Association (Auckland) Inc is currently working with 700+ people living with symptoms, or at risk of developing symptoms of, Huntington’s Disease in the Auckland and Northland regions. With the hard work and dedication of Manager Jo Dysart and Senior Family Liaison Co-ordinator Jane Devine, we support the carers, family members, GP’s, medical specialists and support agencies. In the past 12 months alone we have worked with over 1,250 people, amassing over 17,500 contacts and 4,312 home visits. Family Liaison Service Our professional staff are Huntington’s Disease specialists who help families and professionals respond to the unique challenges of H.D. The clients of the Individual and Family Services programmeare the person living with H.D., their caregivers and family members including people at risk. Support Service Our staff provide counselling and facilitate the process whereby people living with H.D. adjust in all areas of life to losses brought about by the progression of the disease. This service includes assessing people’s needs through one to one consultations, educating clients about H.D. and giving information about community services, finding sources of support, facilitating appropriate referrals and then following up. The service can involve setting goals with the clients, strategising and solution focused problem solving, either working individually with clients or in groups. Service Development This service includes assessing the needs of families living with H.D., identifying the gaps in local services and then preparing and carrying out plans to ensure clients receive appropriate

medical, social service and other community services. Our staff educate generic agencies about H.D. and provide support. They deliver consulting services to health and social service professionals, and advocate for the development of new services; or they work to tailor existing services to meet the needs of individuals and families living with H.D. This service is performed by working with service providers individually or in a group setting and by influencing them to provide a complete continuum of care for H.D. families. Education and Awareness For over 30 years we have been providing information about Huntington’s disease to those living with H.D., their carers as well as the support agencies and medical professionals. Information ranges from symptomology of H.D. to how to manage the symptoms. What is Huntington’s Disease? Huntington’s Disease (H.D.) is an inherited brain disorder. It was named after the doctor who first described it in 1872 – George Huntington – and it used to be called Huntington’s chorea. H.D. causes cells in specific parts of the brain to die: The Caudate, the Putamen and, as the disease progresses, the Cerebral Cortex. As the brain cells die, a person with Huntington’s become less able to control movements, recall events, make decisions and control emotions. The disease leads to incapacitation and, eventually, death. Who gets it? Huntington’s Disease is a genetic disorder. About one in every 10,000 people has H.D. and approximately 5

in every 10,000 are at risk of developing the disease. The H.D. gene is dominant, which means that each child of a parent with HD has a 50% chance of inheriting the disease and is said to be “at risk”. Males and females have the same risk of inheriting the disease. Huntington’s occurs in all races. Primarily, HD affects adults. Symptoms usually appear between the ages of 30 and 45, but there is Juvenile H.D. which appears in children and late onset H.D. in adults in their 60s. What are the symptoms? There are three main types of symptoms in Huntington’s Disease: Physical symptoms, including involuntary movements and diminished coordination, Emotional symptoms, including depression, irritability and obsessiveness, Cognitive symptoms, including loss of ability to recall information, loss of attention and difficulty with decision making. There is a lot of variation in symptoms, and not every person will have all the symptoms to the same degree. Symptoms also vary with each stage of the disease. Address: PO Box 16 181, Sandringham, Auckland Freephone: 0800 432 825 Email: huntingtonsakld@xtra.co.nz Website: www.hdauckland.org.nz or www.tiaho.org.nz/huntingtons

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Motor Neurone Disease What is Motor Neurone Disease? Motor Neurone Disease (MND) - also known as Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig’s Disease - refers to a group of progressive neurological conditions in which the nerve cells - motor neurones – deteriorate and without activation by nerves muscles gradually weaken and waste. The cause is unknown and no cure has been identified but progress is being made in understanding the disease.

Who gets Motor Neurone Disease? MND is a disease of adulthood presenting most in the 50 to 70 year old age group it can occur in younger and older adults. It is seen in all ethnic groups and is a little more common in men. Over 90 per cent of cases have no family history of MND. Approximately 300 people are living with MND in New Zealand at any one time and across the Northland DHB area there are generally around 10-20 people. MND presents differently from person to person but all become increasingly dependent

on others and their life expectancy is shortened significantly. MND poses many challenges: • Remaining positive in the face of living with a progressive life limiting condition • Adjusting to increasing difficulties with moving, speaking, swallowing, breathing • Becoming increasingly dependent on others Support is available to cope with these challenges and various services and therapies help maintain quality of life. The Motor Neurone Disease Association NZ Inc. a registered charity formed over 25 years ago exists to: • Provide up-to-date information Access emotional, social and practical support to clients, families and carers. • Support and advocate for people living with MND. • Develop public awareness and understanding of MND and encourage research.

The Association offers a free Fieldworker Service to support and encourage everyone involved with the person with MND and this strong networking and coordination of care contributes significantly to quality of life for those living with Motor Neurone Disease. The MND Association provides: • Free one to one Fieldworker Support Information packs, newsletters, booklets • Public promotions and awareness activities • Education on MND care for health professionals and service providers The MND Fieldworker for the Northland DHB area, Lin Field, is based in Auckland and supports people from the North Shore to Kaitaia. Support locally is generally via phone/ email but she visits this area two or three times a year. If you have any queries related to Motor Neurone Disease, Lin is available during office hours Mon-Fri. Mobile: 021 2303038 Email: nthfieldwork@mnda.org.nz. Web: www.mnda.org.nz

Bennett & Associates Chartered Accountants PROUD TO PROVIDE SERVICES TO THE NORTHLAND BUSINESS COMMUNITY NORTHLAND owned, focused and operated accounting ﬁrm providing services in: • Audit, Investigation & Forensic Research • Ofﬁce of the Auditor General Approved School Auditor • Small to Medium Size Direct Business Support and Tax Services • Business Recovery, Turn Around & Insolvency Management • Maori Business Advisory & Mentoring Contact us at: 57 Clyde Street, P O Box 627, Whangarei 0140 Ph: (09) 438 2312 Fax: (09) 438 2912 Email: info@bennettca.co.nz Web: www.bennettca.co.nz

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MND Joe Campbell Philippa Mannagh

aving the pleasure of meeting Joe Campbell at Radius Potter Home in Whangarei reminded me that life is short. Less than two years ago at the age of 58, Joe began to develop Motor Neurone Disease. MND progresses differently for each person but for Joe the illness came on fast and within a year he became dependent on others and had a range of support services in his life. Joe first noticed problems at work in the timber mill in Kaitaia; he had less strength in his arms and hands and tasks that he usually managed with one arm were increasingly needing both. Initially he was treated for carpal tunnel issues, which helped but his muscles continued to waste away. Joe then saw a specialist who diagnosed MND, an illness Joe had never heard of

and a real shock. This fit, hardworking, rugby-loving father soon became dependent on a full time wheelchair. Whilst there was the option of remaining at home with support from carers Joeâ&#x20AC;&#x2122;s needs became such that he and his family chose residential care as the best option for them. Joe looks not a day over 50 and with his quick humour and cheeky jokes he happily winds up the friendly staff. He explained his soft voice is caused by the muscle weakness and as his stomach muscles weaken it is hard for him to cough or simply blow his nose now; a sobering realisation of how this disease affects functions we take for granted. Joe may have a week or some years left to him but he says he is not afraid of dying and has no regrets. â&#x20AC;&#x153;When your timeâ&#x20AC;&#x2122;s up, your timeâ&#x20AC;&#x2122;s up. You canâ&#x20AC;&#x2122;t change that.â&#x20AC;? The blue cornflower is the flower of hope for Motor Neurone Disease, hardy

in both frost and drought, its colour never fades. Joe Campbellâ&#x20AC;&#x2122;s colour is certainly not fading as he copes with this most challenging of diseases showing tremendous courage and strength of character.

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Multiple Sclerosis

ms. Northland

he Northland Multiple Sclerosis Society offers a wide variety of services to people with MS, family/whanau members and carers. The service provides information, education and support, ecouraging a proactive approach to managing this disease. The Northland area extends from Wellsford, coast to coast, through to Cape Reinga. If you have MS the society provides: • Home visits, support, and information to you and your family about your condition or in your role as caregiver. • Educates you, your family and other health professionals about MS and related disorders. • Advocates for you with other support agencies and health professionals. Informs you of services available in the community. Provides educational material, books, videos, cd’s etc from the MS Office. Hold support groups for those with MS in Whangarei, Kaikohe/Kerikeri, Dargaville plus a carers’ group in Whangarei. • Free physiotherapy class every Monday, 11am-12noon, at the Kensington gym, in Whangarei. This is run by a registered physiotherapist.

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The following free resources are available: • Comprehensive explanatory booklets on all MS symtoms that may be experienced as well as pamphlets. • MS library books to take out on loan • Activity books to help children understand what MS is to eliminate some of their fears of what their parent maybe going through. • Jig-saw library • Weekly exercise classes facilitated by a specified physiotherapist • Support group meetings in Whangarei and the Mid North • Bi-monthly newsletter which includes useful information on research and development of MS and advice on staying well. • Advocacy service • Field Officer outreach service from Te Hana to Cape Reinga and coast to coast As the office administrator is available 20 hours a week, an answer phone is in place to take calls. Urgent contact can be made directly through the field officer/educator’s cellphone. What is MS? Multiple Sclerosis is one of the most common diseases of the central nervous system. A fatty substance called the myelin sheath covers the fibres of the nervous system. The myelin protects the nerves and helps messages move between the brain and the rest of the body. In MS, the myelin sheath covering the nerves in the brain and spinal cord becomes scarred in scattered patches. This is multiple scarring, or sclerosis. Essentially, this distorts or prevents the flow of messages from the brain and spinal cord to other parts of the body. The distortions to the messages travelling through the nervous system cause a range of problems for people with multiple sclerosis. Although it is important to note that there is no typical set of MS symptoms, the following are common (in varying combinations and severities): • Loss of balance or co-ordination • Tremor and weakness blurred or • Double vision eye pain (usually only affecting one eye) • Difficulty with legs, arms and hand

movements • Bladder and bowel problems • Numbness and pain problems with thinking and remembering • Sexual problems • Fatigue What causes MS: At this time the cause of MS is still unknown. However research suggests it is likely to be a combination of the following: reaction to a virus, possibly years after infection exposure to an unknown environmental agent before puberty an auto-immune reaction in which the body attacks its own tissue for an unknown reason genetic susceptibility to the above triggers. How is MS treated: While MS still cannot be cured much can be done to help manage the condition. There are MS-specific treatments available. These directly target the immune system. A neurologist determines whether these are relevant for each person. Generally the person with MS works with their GP on the day-to-day management of the condition. Contact details Physical address: Suite 6, 71 Bank St, Whangarei Postal address: PO Box 1555, Whangarei Telephone: 09 438 3945 Email address: nthlndms@xtra.co.lnz Website address: tiaho.org.nz/ms, msnz.org.nz

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Multiple Sclerosis

Gael Nankivell

ael Nankivell’s first contact with the Northland Multiple Sclerosis Society was over 12 years ago, the day after she had been diagnosed with Multiple Sclerosis. “When you have just been told that you have an incurable disease, you want up-to-date information and support, and that is exactly what I got from the society’s Field Officer, Kathy Beals,” says Gael. “From that initial contact and ensuing regular home visits by Kathy over the years, I have become more involved with the society and all it offers. “I now attend a weekly exercise class facilitated by a qualified physiotherapist. “This has proven beneficial in many ways: Not only do we exercise our bodies, but the social contact with others who also have MS is awesome. “We can share problems and laughter, essential when faced with the dilemmas of bodies that don’t function as they should anymore! “I have also been challenged by rock-wall climbing and have slithered through the Waipu Caves, two adventures I never envisaged myself participating in that were organised by our field officer. “What a boost to my self-confidence and what fun! “How wonderful to feel that despite my disabilities, and with a little help, I can still do activities that more ablebodied people can do. I also enjoy our spur-of-the-moment coffee outings and the ten-pin bolwing we have been along to. “The ability to laugh at ourselves makes the disability appear less frustrating; comic even! Kathy encourages positivity in all of us. “Northland MS Society provides a resource library, support groups, exercise classes, a Field Officer who gives on-going support in many ways and a bi-monthly newsletter, often containing tips on how to cope and information on all current research into the disease. “An important part of coping with

MS for me is the social interaction with others who also have MS. “Northland MS Society facilitates this and encourages activities that we can participate in.

“I appreciate that our exercise classes and other outings would not occur if it wasn’t for the generosity of the many sponsors that provide funding for this, so a big thank-you must go to those organisations.”

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NorthAble – Out and About, Accessible to All

hree new ways NorthAble is making disability resources accessible to all Northlanders is through our Mobile Information and Equipment van (pictured), our Equipment Plus shop and our new e-commerce site which was launched in July, enabling you to purchase online, from a source you can trust. NorthAble Disability Services also operates a Disability Information and Advisory Service (DIAS), a Needs Assessment and Service Co-ordination Service (NASC), a Community Participation and Vocational Programme (LYNKZ) and a Very High Needs Service.

Mobile Service Information and Equipment Van Packed with equipment and aids for daily living, the NorthAble Mobile Information and Equipment Van is on the move around Kaipara, Mid/ Far North and south Whangarei. This eye-catching van has a regular schedule to provide easy access to equipment, information and support at a location near you. It will also be present at many Northland events and expos. In-home demonstrations of equipment is readily arranged. Equipment In Whangarei, come to the NorthAble Equipment Plus shop for equipment and aids for daily living, available for purchase or hire. Free parking is available right outside the door and you can easily navigate around the spacious shop on your own mobility scooter, wheelchair or walking frame while looking at a wide product range: from mobility to kitchen utensils, to continence products and dressing aids and more! Online NorthAble has just launched its online purchasing site, so keep a look out for www.equipmentplus.org.nz soon! To check us out on other sites and social media, go to Website www.northable.org.nz and Facebook at

www.facebook.com/NorthAble WEKA www.weka.net.nz (WEKA = What Everyone Keeps Asking) is packed with disability information including NorthAble services. DIAS Free, friendly, independent advice and links to a range of information across all disabilities. NASC Access to support with daily life skills and routines and to disability support services. Free to those 0-65 year olds with physical, intellectual or sensory disabilities who meet Ministry of Health criteria. LYNKZ Cooking, arts and crafts, community outings and Whanau Adventures Social Club events initiated by participants, along with employment support and other practical activities for 16-64 year olds who have a physical, intellectual or sensory disability (or a combination of these). LYNKZ Wood A new enterprise that supplies packed Firewood products to a number of Whangarei outlets, while providing work experience and skills training to participants of the LYNKZ programme. Wood is also available for purchase from the Equipment Plus shop.

Very High Needs Service The aim of the VHN service is to work with young adults who have left (or are just about to leave) school and have been assessed by the on-going resources schemes (ORS) as having severe disabilities (VHN), to develop a plan based on their goals and aspirations, and then to purchase appropriate vocational and day programmes. NorthAble also offers many other services: • Can advertise your pre-loved equipment for sale • Sources funding options for people with disabilities • Speaks to groups about disability services and equipment • Is an assessing agency for the ‘Total Mobility’ subsidised taxi fares scheme • Produces and distributes a weekly email update and quarterly newsletter • Operates a library of disability-themed books, DVDs and information. • Rents its accessible Whangarei meeting room at discounted rates to not-forprofits • Has accessible toilets open to all. Office hours, 40 John St, Whangarei As an organisation with 23 years of local service, NorthAble continues to offer its traditional provision of quality disability information, support and services to Northland Tai Tokerau.

Contact NorthAble Whangarei Office Phone: 09 430 0988, Freephone: 0508 637 200, Fax: 09 438 9468 Email: drc@northable.org.nz Address: 40 John Street, Whangarei 0110

GETTING

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NorthAble LYNKZ & Tori

ince 1995, when his daughter Tori was diagnosed with autism, Jonathan (Joff) Clark’s life has revolved around giving her a life. Now 18 years old, Tori is severely autistic and very non-verbal, and Joff is her sole, fulltime carer. “Tori is quite high needs, her speech is probably like that of a two year old and very hard to understand,” he says. Originally from Northland, they moved to Christchurch a few years ago to access the support services available for Tori there. “There was really no help available here in Northland at the time apart from one speech therapist and one child psychologist,” Joff says. Christchurch proved a good move, with the services there very well run, but Joff and Tori came back to the north after the earthquake and were pleasantly surprised by the improvement in support

available here. After they’d been back for a year they discovered LYNKZ, a day activity centre for disabled people. The LYNKZ programme is unique to NorthAble, supporting community and workplace skills for people living with a disability, and includes Maori culture, arts and crafts and other activities. “It’s been really good,” Joff says, “and Tori is very happy. There have been only very few days when she has plummeted.” The people at LYNKZ have worked hard to pick up the language Tori does have, and they enjoy spending time with her. “She is always very included and involved in whatever is going on there,” Joff says. “Everyone there steps up.” Tori is currently the only person with autism who attends the programme, and Joff says the fact that she responds so well is an indication of how helpful it could be to others with the condition.

NorthAble Equipment Plus purchase from a source you can trust

Equipment to buy or hire: • • • • • •

Mobility Bathroom/toilet Continence Bedroom Aids for daily living Clothing/footwear and more Home demonstrations readily arranged If we haven’t got it, we’ll source it for you Free accessible parking

CALL 0508 637 200 or 09 430 3469 or 027 453 8797

NorthAble Equipment Plus Cnr John & Dent Sts Whangarei Ph: 09 430 3469 Freephone: 0508 637 2000 Mon-Fri 9am-5pm; Sat 9am-2pm

for information on when the mobile service is next near you

Purchase Equipment Plus products safely & securely online

NEW! Launching during July 2013 www.equipmentplus.org.nz

GETTING

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Parent to Parent

Parent to Parent Northland

arent to Parent is a national charity networking throughout New Zealand with the sole aim of supporting and empowering families and whanau caring for a loved one with a disability or specific need. Here in Northland our service includes: • Local information, supports, services and news on local events, workshops and programmes within our region. • Matching, Support Parents are ordinary parents who are also caring for a loved one with special needs, putting them in the unique position of being able to understand the highs and lows of caring for a child with additional needs. Support Parents can offer a listening ear and practical suggestions to parents and carers of children with a diagnosed condition. • Individualised information, on ALL disabilities and health conditions.

Put together especially for you the information can be very basic such as “What is Autism” or more personalised and specific such as “Tips for managing an egg allergy” “Strategies to encourage positive behaviour in ADHD” or “Therapies for a seven year old who has Cerebral Palsy” • Sibling Support, designed to provide an experience that will help siblings cope with the challenges of living with a brother or sister who has a disability or additional need. Workshops are delivered by leaders who also have a sibling who has a disability which means they can relate to the children, support them and acknowledge their individual issues. Altogether Autism information and support service for people with Autism Spectrum Disorder, families, whanau and the wider community.`

Supporting Families NZ was started by families and whanau who wanted to be actively involved in their loved ones’ recovery and who called for better mental health services. Our long standing practice of supporting strong and resilient family whanau relationships is today acknowledged as a critical factor for recovery of people experiencing mental illness and or addiction. We believe whanau who have the right assistance and information are best placed to maintain their

own personal well-being and support the recovery of their loved one. We provide FREE support, education and information to families & whanau in the Northland area. Supporting Families is registered under the Charities Act (reg no cc20936). For more information about our range of services and joining the online family forum, which is FREE to all Northland residents, please visit our website

www.supportingfamilies.org.nz or call us on 0800 732 825

Supporting Families in Mental Illness 49 Gillies Street, Kawakawa Northland, 0219 New Zealand. PO Box 154, Kaikohe 0440

Freephone: 0800 732 825 Telephone/Fax: (09) 404 0781 Email: admin@sfauckland.org.nz or www.supportingfamilies.org.nz

GETTING

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Parent to Parent

Lisa Reed

hen Lisa Reed logs on to Facebook, it’s not to check out what her friends have been doing. The 37 year old mother of three is more often than not on the Parent to Parent page, researching, learning, and finding out more about how to deal with the challenges she and her family are facing. Last year Lisa’s nine year old daughter Katie was diagnosed with lung disease, and during one of her frequent hospital stays, her Mum was given a pack of information on support services. In that pack was a brochure about Parent to Parent. Now, a year or so down the track, she says she can’t rate the organisation highly enough. “The first thing they did was put us in touch with another family whose child

– two years older than Katie – has the same problem. We’re in touch by email and it’s great having someone in the same situation to talk to.” For Lisa, Katie’s frequent, unplanned visits to hospital are the most difficult aspect of her care. Between May 2012 and February this year she had four hospital admissions – one at Starship, and the rest in Whangarei. She also needs extra support at home, and is able to attend a normal school only part time. Another challenge is keeping Katie’s two siblings, aged seven and two, involved. “Parent to Parent also supports other kids in the family so they know they are special as well,” Lisa says. “Otherwise, they can feel a bit forgotten.”

The sibling support group arranges workshops and activities, and recently Lisa and her family were involved in a weekend workshop with a story telling, music and a puppet show. Despite the difficulties the family faces, Lisa says she feels extremely lucky to have had such great support. “It is amazing how people are prepared to go the extra mile.”

GETTING

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Parkinson’s

Parkinson’s Northland

arkinson’s Northland provides Field Officer Support, education, information and fellowship to people with Parkinson’s disease, and their caregivers, families and whanau. They also have a substantial library service and audio-visual material. Although there is no charge for the Field Officer Support, clients are asked to pay a small annual membership fee to assist with wages and travelling expenses for staff, day to day running costs and the printing and postage of the monthly Newsletter. From this membership fee a levy is paid to the National Office which provides the Quarterly publication of the Parkinsonian. This magazine has all the up to date news on Research, Medications and other items of interest to members. The local Division is not allowed to include this information in their own local publication. Fundraising is done throughout the year to assist with purchase of new library books, The Upbeat Group and to offset the shortfall of funding from Charitable Trusts, Lotteries etc. The Field Officer Service: • Provides home visits to re-assure, motivate and advise people with Parkinson’s and people associated with them. • Acts as health advocate for health services. • Monitors medication management and helps note any beneficial or adverse affects. • Monitors progress of the condition and advises on effective management strategies. • Refers clients to other agencies, e.g. for assessment for home support. • Organizes educational courses. • Holds in-service training in rest homes and other health services. Contact: Vicki Sadgrove 09 459 7331 or 027 268 4973

Support Groups: Meetings for all members, caregivers, family and friends of the society are held monthly in Whangarei and Kerikeri and every second month in Kaitaia and Dargaville. Most groups have a Guest Speaker and the confirmed venues and times for these groups are advertised in the Monthly Newsletter. For further information contact the co-ordinator, Leonie Robertson 09 436 1196. Exercise Groups: • Walking Group A group of keen walkers meet in Whangarei every Monday morning and walk one of the many beautiful walkways we have around the city and adjacent beaches etc. A very enthusiastic group. If there was enough interest another group could be organized for those who can only manage short walks. So a challenge to all Parkinson’s couch potatoes to get walking in a supportive group an honest try. Bring your walker if you need to use one, your walking stick or hiking stick, whatever aid is required. Just get out, get fresh air you’ll always be in good company. Please phone Margaret Page 09 43 56 239 if you are interested. Singing/ Voice Training Group Held every Tuesday at 10.00am at the New Hope Church in Nixon Street, Whangarei. Come along and join in the singing. The ability to hit the right note or keep a tune is not necessary and does not take away the fun of belting out the good old songs we all know. It’s not about the singing it’s about posture, expanding your chest, facial exercises and getting your voice out there. Contact the Field Officer if you would like to join. The aims of this group are: 1. To have fun 2. To counterbalance the softening of the voice and the flattening of the tone.

3. To strengthen the lungs and enunciation. Pilates for Parkinson’s Classes are throughout the year at the New Hope Church in Nixon Street, Whangarei. Classes are conducted by Mrs. Barbara Faust or one of her specially trained instructors. Please phone Barbara 09 43 20 386 if you are interested in registering for one of these classes. There is a charge for these classes. Other Pilates classes are held around the North so ring Barbara and she will give you times and venues. Upbeat & Newly Diagnosed: Upbeat is a special interest group for people diagnosed with Parkinson’s under the age of 60. National Office organize an Outward Bound Course each year in Picton. An Upbeat Conference is usually held every second year for those diagnosed under 60 and they can attend these conferences until they reach the age of 65. In Northland we have formed a very social group along with the Newly Diagnosed and they meet from time to play Table Tennis, Ten Pin Bowling and other exciting things or sometimes just for lunch or coffee. For further information on this group please contact the Field Officer. Carers’ Only Groups: • Whangarei: Meet every second month usually at the home of Jacqui Seymour, 38 Amber Drive, Tikipunga at 10am for Morning Tea. All Caregivers are welcome. Phone Jacqui on 09 43 53 592 if you are interested in attending. • Kerikeri: Meet from time to time at a local café usually whilst their partners attend their own session with Vicki. They then all meet together for lunch. For further information please contact the Co-ordinator Leonie Robertson 09 43 61 196 or the Field Officer Vicki Sadgrove 09 459 7331.

GETTING

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Parkinson’s Susie Abraham

or Susie Abraham, the saddest thing about having Parkinson’s is being unable to smell the daphne plants outside her front door. Susie lost her sense of smell with the onset of the condition, and when she realised she couldn’t smell that sweet, heady fragrance, she knew something was wrong. “I’ve always really loved cooking too, but now I burn so many things because I can’t smell them,” she says. “You don’t realise how much you depend on your sense of smell when you’re cooking.” Despite the challenges, Susie is upbeat about her situation and refuses to dwell on the negatives. “Live your life, seize the day and go forward positively,” she says. And she walks the talk, getting lots of exercise, taking a Pilates class, and working as a committee member of the local branch of Parkinson’s New Zealand. Her involvement with the organisation began when she was first diagnosed. “I got in touch and asked someone to come and see me, because I wanted someone who was not family, who would notice the changes in me.” Parkinson’s New Zealand supports sufferers and their carers, and Susie felt strongly that she should get in there and do something for them while she could. “Luckily I am still functioning normally and I am at an age where I can help.” Having said that, she does have symptoms apart from the lack of smell – shoulder pain, some weakness on her left side, and some shakiness, although not all the time. “Exercise is good for that, and it also helps to stave off depression, which can be an issue for those with Parkinson’s,” she explains. “I take medication and maintain a positive attitude.” That positive attitude recently saw her complete a one week, modified Outward Bound course. It was physically and mentally challenging, and she describes it as “awesome”. With characteristic humour she says: “I’d always wanted to go to Outward Bound. Pity I had to get Parkinson’s to do it.”

Free about town mobility

Access WHANGAREI

Whangarei District Council provides a free mobility scooter for use about town for people with limited ability. You can pick the scooter up from the Whangarei Central Library on Rust Ave â&#x20AC;˘ phone 430 4206. Proudly donated by Northable. Ph 0508 637 200 www.northable.org.nz

A guide to accessible facilities in Whangarei

CityLink Whangarei 09 438 7142 â&#x20AC;˘ www.nrc.govt.nz &LW\/LQN :KDQJDUHL KDYH WHQ ORZ Ă&#x20AC;RRU ZKHHOFKDLU IULHQGO\ EXVHV LQ WKHLU Ă&#x20AC;HHW 3OHDVH SKRQH WKHP WR FKHFN WKH route availability if you need to catch one.

Accessible transport Mobility van and taxi services Kiwi Cabs

09 470 2299 or 0800 728 5868

Whangarei A1 Cabs

Accessible buildings and facilities

Accommodation

Recreation/Entertainment

Avenue Heights Motel

Whangarei Aquatic Centre

355 Western Hills Drv

09 438 2737

BKâ&#x20AC;&#x2122;s Pohutukawa Lodge 362 Western Hills Drv

Parking

Accessible toilets

Wheelchair access

09 438 3377 or 0800 438 3377

Ewing Rd

09 430 8634

Town Basin, Dent St

Claphams Clock Museum

Waverly St, Onerahi

Town Basin, Dent St

09 436 2107

Kingsgate Hotel Riverside Drv

260 Kamo Rd

09 438 0284

James St

09 437 5779

Kiwi North, Museum, Kiwi House, Heritage Park SH14, Maunu

361 Western Hills Drv

09 438 0404

09 438 1079

The Hub Information Centre Town Basin, 91 Dent St

Cnr Cheviot St & Western Hills Drv 09 438 2341

Settlers Hotel Hatea Drv

09 438 2699

09 430 0988

Citizens Advice Bureau 71 Bank St

Conference Venues Rust Ave

09 430 4200

Whangarei Central Police Station Cameron St

09 430 4500

In Town Basin Playground

09 438 3993

Kensington Fitness Centre

Cnr Commerce St & Woods Rd

09 437 4404

09 430 3838

Whangarei Ten Pin Bowling and Entertainment Centre 09 430 4833

129 Port Rd

09 438 1028

Kingsgate Hotel Riverside Drv Rust Ave

09 438 0284

Cheviot Park Motor Lodge Cnr Cheviot St & Western Hills Drv 09 438 2341

Whangarei District Airport

Northland Cricket Association

Onerahi

Okara Drv

09 436 0535

09 430 4244

Toll Stadium 51 Okara Drv

Forum North, Rust Ave

09 430 4833

Forum North Performance Convention & Expo Centre

Chipmunks Playland and Cafe

Forum North

Whangarei District Council

51 Okara Drv

Western Hills Drv

0800 367 222

Public amenities

09 430 4206

Wheelchair accessible swing

NorthAble Disability Services 40 John St

09 438 9630

Toll Stadium

Rust Ave

09 430 1188

09 470 1940

Whangarei District Central Library Rust Ave

Cheviot Park Motor Lodge Tarewa Park, 92 Otaika Rd

09 438 3993

Event Cinemas

Lodge Bordeaux

I-Site Whangarei Visitor Centre

09 430 4240

Flames International Hotel

Kingswood Manor Motel

Information

09 438 7957

Whangarei Art Museum

09 438 2400

CBD Medical Facilities White Cross 121 Bank St

09 470 1083

Urgent Pharmacy Kensington Ave

09 437 3722

Whangarei Hospital Maunu Rd

09 430 4100

n/a

7KLV PDS KDV EHHQ GHVLJQHG WR KHOS \RX ¿QG \RXU way around the city, listing mobility parking spaces, accessible amenities including toilets, accommodation, conference, retail and dining options and other useful information for visitors. Selected listings have been assigned numbers and are highlighted on the map. To be clear about what we mean by accessible, we have used the following three meanings of accessibility:

Facilities with accessible car parks • Facilities that have accessible car parks within 200 meters of the main entrance/exit

Wheelchair access into the building or facility

Disclaimer

We want your time in Whangarei to be safe and enjoyable.

• Entrances into the facility are level. • Entrance doorways are at least 760mm wide.

The purpose of the Access Whangarei Map is to highlight public amenities and businesses which have accessible features as described above. It is not intended in any way as a means of identifying compliance with any statutory obligations.

If you see anything that QHHGV ¿[LQJ RU \RX WKLQN LV unsafe give City Safe a call on 0800 258 258.

• The main body of the facility is on one level or has lift access.

Accessible toilets There is an accessible toilet in the main area of the facility that:

In emergencies dial 111.

• Has a doorway with a 1200mm clear approach space.

Ensuring a safer city.

• Doorway is 760mm wide. • Has a 90 degree L-Shaped grab rail beside the toilet.

DISABILITY

ADVISORY GROUP

Whangarei City Centre BAN

K ST

To Bay of Islands

RD AS ND

ST NE RA TH BO

ACTORY LA RF NE TE UT

AY S

JO HN

N TO AL W

WA Y

IDE

Town Basin

Whangarei Aquatic Centre

Toll Stadium

UT RR

FIN LA YS

OKARA DRV

WOODS RD

TARE WA RD ST

PORT RD

AV E

MO RNIN

ANZAC RD

Police Station

Cameron St Mall

AS UIK

TAREWA RD

Youth Space

ST AV E

Whangarei District Council

HEREKINO ST

Y RD WA RAIL

FIR

Forum North Performance and Conference Centre

CL YD

N ST WALTO

Whangarei Central Library

N LTO WA

WA TE

AV E

LA VE

M CA

SE CO ND

REYBURN ST

IR D

Bus Terminal

KA NU

U MA

ita

osp

ei H

gar

an Wh

IDE

T ST F

AV E

BANK

DR LL S HI RN TE

AV E

VE ST A FIR

M RO

Public Toilet Facilities D

N D E R ST

IV E

W 1 SH

Information

R LE VA

ERS

AV E FIF

8 RIV

AN SL

LOV

T ST

IEW

DEN

HUN

YN A VE

SEAV

Mobility Parking

Hatea River

EWING RD

RY L A

SELW

Y ST

HA TEA

VINE

NORFO

LK ST

Key GRE

LOWER

E RD

GSID

RIVER CROSSING HATEA

GETTING

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Stroke

We Work With Stroke Survivors

Is it a stroke? check it out the F.A.S.T way Face

Arms

Smile - is one side drooping?

Raise both arms - is one side weak?

Speech

Time

Speak unable to? Words jumbled, slurred?

Act fast & call 111! Time lost may mean brain lost.

STROKE IS A MEDICAL EMERGENCY

CALL 111 IMMEDIATELY

Stroke Foundation Services Northland Field Officer: Merilyn Palmer Phone: 09 437 0859 (Kawakawa to Wellsford) Field Officer: Jo Mete Free Phone: 0800 566 383 (Kawakawa to Cape Reinga)

e provide information and support to people affected by stroke, their whanau and caregivers, in order to assist recovery, social adjustment and improve quality of life. The services provided by the Stroke Foundation and its various support groups, complement each other and follow on from where the health services leave off. Our purpose is to help people

Continued on Page 35

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Stroke

Kerei James Continued from Page 34 who have had a stroke to improve their quality of life. We provide information, support and advocacy through our Field Officer, and stroke support clubs that assist the stroke affected community. We also provide information through literature, videos and our Freephone helpline to the general public. We work with the stroke survivor; their family/whanau and caregivers, health professionals, volunteers and others who will help promote the wellbeing of the person who has had a stroke. The general focus is on rehabilitating the stroke survivor back into the community. It is also to help the person with a stroke, their family/ whanau and caregivers, understand a stroke and adjust to their considerably changed circumstances following a stroke. Our Field Officer is available to discuss any stroke related problems, make hospital visits, home visits, advise on services available in the community and liaise with Stroke Clubs. We have a Stroke Club in Whangarei, meeting every 3rd Wednesday at the Kamo Club that offers friendship and support. We also run a hydro therapy session at the Whangarei Aquatic Centre in conjunction with a Physiotherapist once a week (by assessment only) on Tuesdays from 12noon-1.00pm and a Stroke Support Group in Dargaville meets the first Monday of the month at 1.30pm. Please contact our Field Offcer for further information about these groups or to book in for the hydro therapy session. You can also visit www.tiaho.org.nz/about/events to view dates of these support groups. Visit our webpage at www.tiaho.org. nz/stroke to read our latest newsletter or download an information sheet about our services.

obody could accuse Kerei James of being a sit-around kind of guy. Seven years ago he graduated from The University of Auckland with his Bachelor Of Education –Teaching, and he had certainly been putting it to use. Prior to February last year he was teaching at the Kura Kaupapa Maori o Te Rawhitiroa in Tikipunga, setting up programmes in Te Reo for this Kura as well as Te Kura Kaupapa Maori o Kaikohe, and translating children’s programmes into Maori for Kura Productions - Maori TV. Just after completing those translations Kerei and his wife Hoki were visiting family in Bulli, Australia. A week after they came home, Kerei had a stroke. He spent three months in The Stroke Ward at Whangarei Hospital but has made an amazing recovery. And typically, he isn’t sitting around now, either. “He comes to kura and works with one of my reading groups some days. He has fostered friendships wherever he goes, encouraging people at the Merrivale Rest Home in Kamo, and also at the Hydrothrapy Classes at the Aquatic Centre in Whangarei,” says Merilyn Parlmer, Northland Field

Officer for the Stroke Foundation. As field officer, Merilyn and the stroke support clubs help the strokeaffected community, providing support and advocacy, information through literature and videos, and a freephone helpline to the general public. “He is continually nagging me to take him to see sick relations either at the hospital or at their homes. Most times this is only possible on the weekends. “Our Field Officer and stroke support clubs assist the strokeaffected community. We also provide information through literature, videos and our freephone helpline to the general public. “We also provide information, support and advocacy through a Field Officer.” You can also join one of the Northland Stroke Clubs.

GETTING

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Whanau Ora By Jonny Wilkinson, Chief Executive, Tiaho Trust.

Whanau Ora. We’ve all read about it but what is it, and what does it mean? Wha¯nau Ora is an inclusive interagency approach to providing health and social services to build the capacity of all New Zealand families in need. It empowers wha¯nau as a whole rather than focusing separately on individual family members and their problems. Some wha¯nau will want to come up with their own ways of improving their lives and may want to work on this with a hapu¯, iwi or a non-government organisation (NGO). Other wha¯nau will want to seek help from specialist Wha¯nau Ora providers who will offer a practitioner or ‘navigator’ to work with them to identify their needs, develop a plan to address those needs and broker their access to a range of health and social services.

Home Support North Charitable Trust We Offer:FREE assistance/support at home to older & disabled people where eligible Local Offices in Kerikeri and Whangarei Service Plans tailored to YOUR needs Ongoing support from qualified Nurses Trained Support Workers Northland wide coverage

Need Further Info? Kerikeri: 09 401 6657 Whangarei: 09 430 2090 0800 832 383 www.homesupport.co.nz

ersonally I think Whanau Ora is a fantastic concept. It aims to practically and strategically improve the wellbeing and quality of life for families, not just at the present but generationally over time. It addresses issues that we unfortunately read about and hear in the news time and time again. Whanau Ora is about empowering whanau to take control of their future. For whanau to be self-determining, to be living healthy lifestyles, to be participating fully in society and to be economically secure. It is, I believe, a sophisticated way of short circuiting problems which would otherwise be passed on from generation to generation. What does Whanau Ora mean for disabled people and their families? Tiaho Trust is working to help families access Whanau Ora resources so that whanau can generate an enabling environment for the disabled member, and the wider family. Because disability is inherently diverse in its nature, there needs to be an equally diverse range of options and solutions. Issues of co-dependency, the need to be independent from parents, to have age appropriate peers, to have access to services as well as effective

Paulette Crowther • Ofﬁce Support • Copy Services • Computer Repairs • Printer cartridge sales 09 435 5353 027 232 4478 446 Kamo Road Kamo 0112

serve delivery, ageing parents with no contingency plan for when they are no longer able to look after their son or daughter, and in worst-case scenarios, financial abuse. Recently we have seen the announcement of a new scheme which will provide remuneration for parents who provide the care to their adult children with disabilities. However, what hasn’t been discussed is the down side of being an adult and still living at home and what this means for the well-being of the disabled person and their whanau. This is an interesting concept because I think sometimes the general public take for granted that the best place for a disabled person is with their parents. Well sometimes it is but sometimes it isn’t. Whanau Ora planning is a very effective way of addressing such issues. It’s not easy but families and whanau by their very nature are not simple or straight forward. Families with disabled people who plan towards the betterment of a family as a whole, not only improve the disabled person’s life, but improve their own and the generations who come after them. Tiaho Trust engages with whanau who have decided they want to make changes for the benefit of their whole whanau. Tiaho Trust provides a navigator who works with the whanau to support them as they identify needs, goals and aspirations. Through this process the whanau create a plan, which acts as the roadmap to achieving those aspirations. The navigator’s role is one of awhi and guidance as whanau determine for themselves, what they want to achieve. If any family with a disabled family member is interested in Whanau Ora they should contact us here at Tiaho Trust.

GETTING

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Asthma

Northland Asthma Society Helping people to Breathe Easier

achel Tarawa and her son Mark are now both able to breathe easier thanks to the help and support of the Northland Asthma Society. Rachel’s family has a history of Asthma and as a child herself was in and out of hospital with Asthma attacks, and knows just how important it is to understand and to be able to control your asthma. While Rachel was hopeful of her own children not having asthma, she felt she knew enough about asthma to cope with it if they did, but her second son Mark was continually waking at night coughing and struggling to breathe, and was often too tired to go to school the next day. When Tikipunga Primary School recommended a visit from the Asthma Society nurse Rachel was grateful that someone else was available to explain

to Mark how to use his inhaler correctly, and how important it was that he take his asthma medication regularly. Rachel says Mark now understands just how serious asthma is and with the help of the spacer ( a device that ensures you get more of the medicine inhaled into your lungs where it does the most good) he is feeling much better. Rachel sees first hand the benefits of Marks visit with the Asthma Nurse. In just a few weeks since his visit with the Nurse he’s no longer waking every night, and so he is not missing school. He is happier in himself because he is getting better sleep and not struggling to breathe. Mark is more motivated to take his medicine because he is getting the full benefit of it, and is able to do more exercise and things that other nine year olds do.

NO ORTH HLAND AST THMA A SOC CIETY

herre to ed ducate and support yo ou in the e ma anageme ent of your astthma an nd COPD D. OUR CONSULTATION SERVICES ARE FREE We have two Respiratory Nurse Educators to support and educate you in: • Understanding breathing techniques • Correct use of your Inhaler • How using a spacer will benefit you • How to prevent some of the asthma triggers • Benefits of Peak Flow Measurement • Understanding your lungs and airways • Understanding your asthma medication • Emergency plans

WE PERFORM LUNG FUNCTION DIAGNOSTIC TESTING. WE SUPPLY: Dust Mite covers | Spacers Nebulisers and accessories (Hireage/Purchase) Haleraids | Information (charges apply to some products)

We are a NFP Charitable organisation helping all age groups in our northland community, and work alongside all other primary health care providers to improve the health and wellbeing of those suffering from Asthma and other Respiratory conditions.

Remem mber: You aree not alone we are heere to suppoort yoou.

We are in two locations: Whangarei, 1/15 Central Avenue, & Kaikohe, 2 Marino Place.

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CLM

Hydrotherapy Pool & Classes at the Whangarei Aquatic Centre

Introducing IIMPROVE IMP PPROVE ROVE ROVE OVE MOBILITY, OV MOBBIILIL TY MO T, SSTRENGTH, ST STREN RENNGTH, NGTTH NGTH TH, FEXIBILITY F XI FE XXIBBI BILILITTY BILI TY AN FITN AAND FITNESS! ESS! ESS! S! NES

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ydrotherapy pool and classes at the Whangarei Aquatic Centre - designed to suit the elderly, disabled and those recovering from injury or disease, the focus is on total wellbeing. The goal of the programme is to provide gentle activities using functional movements that will improve mobility, strength, flexibility and fitness which will contribute to enhancing the userâ&#x20AC;&#x2122;s quality of life. Exercise in the water can improve physical fitness and promote a healthier lifestyle. The reduced effects of gravity and increased effects of buoyancy provide support to the body weight and decrease the stress on weight-bearing joints. This makes water-based activities a safer and more comfortable form of training for specialist groups such as the overweight, pregnant, senior and the physically less able. The hydrostatic pressure exerted by water improves the circulation of blood around the body, and the hydrotherapy pool water is

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maintained at a comfortable temperature. We offer three levels of classes. ‘Hydro Beginners’ is a new class run on Mondays at 10am for 1 hour; ‘Hydro Tonic’ is very similar and we offer four of these classes a week. It is a great place for beginners to start their water experience. With a focus on total wellbeing; the programme’s goal is to provide gentle activities using functional movements that will improve mobility, strength, flexibility and fitness to contribute to an enhanced quality of life. A more intense workout is ‘Hydro Motion’ which is based on building basic strength and fitness using the water and aqua equipment for added resistance and working on power through the water. It is purely recommended for the elite users of the hydro pool.

Riding for the Disabled

hangarei Riding for the Disabled helps 90 riders over a 4 day week, Mon – Thurs. We have 5 paid staff and 39 volunteers, and at the moment 5 horses. We help intellectually and physically disabled riders to gain confidence, independence and wellbeing through therapeutic horse riding and horse care. RDA aims to teach equestrian skills. These are transferable into rehabilitation and training in aspects of daily living. Riding and interaction with horses and our coaches and volunteers motivates people to achieve independence and personal goals. All our riders have their own goals and programmes are worked out individually so the riders can reach these goals. Without the help of our volunteers we would not be

able to do what we do and the riders would not have the outcomes they have. Our aim is to help the riders gain muscle tone, coordination, confidence, core strength and at the same time have fun and compete in passive competition with other riders of the same ability. Every term on the last week we hold a daily Ribbon Day where the riders compete for coloured ribbons. They love this day and try very hard for the ribbons. Everyone wins a ribbon and it is great to see the smiles from their accomplishments.

Inside Aquatic Centre Freshly made food here! Coffee! Children birthday parties! Groups welcome! Disability friendly!

(09) 438-6891 WaveCafeWhangarei

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Age Concern

A MISSION STATEMENT Promoting the rights and wellbeing of older people and those who care for them Age Concern supports the Positive Ageing Strategy New Zealand in which older people are encouraged and supported to remain self reliant and to continue to participate and contribute to the wellbeing of themselves, their families and wider community.

ge Concern Whangarei is a notfor-profit charitable organisation which has been working to promote the wellbeing and quality of life of older people and their carers since 1948. The organisation welcomes the Government’s commitment to a positive ageing strategy and health of older people strategy for New Zealand and supports the concept to improve attitudes towards ageing and ageing through the years such as preparing for retirement, working post retirement, education and employment opportunities, and protection and promotion of the rights of older people and their carers.

This organisation employs qualified staff members who are familiar with the needs of the community and who maintain strong networks to enhance the work of Age Concern Whangarei on behalf of older people.

Services The following services are provided by Age Concern Whangarei: • Home maintenance service: Older people are provided with assistance with repairs and practical aids at minimal cost to enable them to stay in their own homes. This service gives support and advice from a trustworthy, skilled, caring person. The service co-ordinator handles around 1800 requests for assistance each year. • Field work/advocacy and support: Many older people are at a loss as to where to go for either health issues or general assistance in dealing with a variety of concerns that might otherwise overwhelm them. Coordinators for this service can field over 1900 calls a year as well as making home visits and facilitating monthly networkers meetings. • Health promotion and education: Age Concern Whangarei has an annual calendar of events on relevant topics and workshops. • Accredited visiting service: This service provides older people with an approved visitor for company support and friendship. Volunteers are trained and supervised by the accredited visitors co-ordinator giving support to the older individual and their families in many different ways.

NATIONWIDE HEALTH & DISABILITY ADVOCACY SERVICE The Health and Disability Commissioner’s Act was passed in 1994. Under the Act a National Advocacy Service was set up to assist consumers with concerns/complaints to achieve low level resolution, where possible, with Health and Disability Service Providers. The National Advocacy Trust is a charitable trust responsible for the provision of services in both North and South Islands. Our staff are situated in ofﬁces from Kaitaia to Invercargill. The aim of advocacy is to help those in need by empowering them to help themselves through the provision of information about the Code of Health & Disability Services Consumers’ Rights, the Health & Disability Commissioner’s ofﬁce and the role of advocacy. Advocates provide free education and training to any group or organisation on advocacy, the role of the Health and Disability Commissioner, your rights as a consumer and what to do if you wish to make a complaint. Advocacy is a very successful way of resolving complaints, and is usually achieved more quickly than by other options. The National Advocacy Service is independent of health and disability service providers and is a free service available to anyone. Our Advocate in Whangarei is Mary-Claire Taffs, who is available on our Freephone number 0800-555 050, or Whangarei 09 430 0166 or email mtaffs@hdc.org.nz.

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Age Concern

Dissemination of information, referral service, advice and fact sheets Age Concern newsletter, the Age Link, produced and delivered quarterly • Office reception: Age Concern Whangarei receptionists are all trained volunteers, rostered to process all enquiries five days a week. • Office administration: We facilitate services we provide are accessible to those people requiring our services. Consultation forums for older people Seminars for older people and carers of older people • Volunteer training • Lending and reference library • Events calendar • Celebrations of the contribution older adults and volunteers have made and make to the community is now an annual event

Funding Issues Age Concern Whangarei is continually looking for funding to maintain the services provided, develop new initiatives, increase service delivery, and cover overheads and other expenses. Funding secured is tagged for the purpose of the project/service as applied for at the time, according to the criteria of the funding agency or trust. Age Concern Whangarei Incorporated is an Age Concern Council which is affiliated with, but autonomous of Age Concern NZ Inc.

AGE CONCERN NEW ZEALAND Age Concern new Zealand is the national body. Its membership comprises Age Concern Councils. It is a voluntary organisation with more than 45 years experience in fostering dignity, wellbeing, equity and cultural respect in the community. It is a voice for older people as they make their own decisions on all matters that affect them. Age Concern monitors and circulates information pertaining to health, welfare and positive ageing opportunities, and ageing in place. It promotes awareness for and about older people with brochures, fact sheets and other resources.

It works with the public, private and community sector organisations to improve services for older people. And it provides advice and information to government and other national organisations. Age Concern Councils endeavour to: Provide information, advice and referral on the day-to-day issues affecting older people. Initiate the development of services and education programmes. Raise funds and enable the provision of on-going services and programmes. Continue to raise awareness about positive ageing and the needs of older people. Liaise with the public, private and community organisations on a local level. Ensure a better future for older people in New Zealand.

STATISTICS Age Concern Whangarei has more than 1850 members, enjoying the service of 200 volunteers and employs a staff of 15.

haki Cou ara

• Dedicated carer relief service: Age Concern Whangarei provides relief for carers in their own homes, allowing the carer time out to address their own health issues, shopping, and business, social or recreational activities. It provides support for both the carer and their loved one, and helps prevent carer stress.

Rest Home too d, d, "Ne "Ne Never to o olld Never too La Late e""

Home away from home Care • Comfort • Companionship 45-47 Kamo Road, Whangarei

Phone: 09-437 3311 Licensed by the Health Department

Manager: Maryanne Thompson, RN

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Bank Street Community Services

he Municipal Building, aka the Old Town Hall, at 71 Bank St celebrated its 100th birthday last year. It is worth a visit inside to see the beautiful tiling and woodwork that was characteristic of that era of building craftsmanship â&#x20AC;&#x201C; a building fit for the mayors and councillors who

once frequented it. Older residents of Whangarei will remember the dances held in the hall to the rear of the building, which backed on to the train stop. The historic building now is home to several social service groups, and is adjacent to a bus stop. On the ground floor is the Citizens Advice Bureau, Epilepsy Northland, the Specific Learning Difficulties Association, and Multiple Sclerosis support. There is also a counsellor on this floor. Upstairs is Literacy Whangarei, the Out of School Care group OSCAR,

Settlement Support and New Migrants Centre, Womens International Newcomers Group, and the new office of the Volunteering Whangarei organisation.

Regent Healing Rooms Trained volunteers from local churches will pray for healing for all who come.

Open: 1st & 3rd Monday of each month 3â&#x20AC;&#x201D;5.30pm. Venue: Central Baptist church opp. New World supermarket.

Whangarei migrant centre

Supporting Whangarei Migrant, Newcomers and Our Community

No charge. No appt. needed. 71 Bank Street, Whangarei Ph: (09)4300571

Counselling and/or group support for Men, Couples, Youth and Boys: Relationship issues, Abusive behaviours, Anger & Stress Men, Couples, Youth, & Boys You are welcome to ring us and check out our servicesâ&#x20AC;Ś

New to New Zealand? Settlement Support New Zealand (SSNZ) is a FREE service for newcomers and migrants, to help you feel at home and settle well in New Zealand.

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Our advice is free. Not getting it could cost you though.

09 459 7930

Our motto â&#x20AC;&#x153;Bloom where you are plantedâ&#x20AC;?

71 Bank St, Room 12, Whangarei

09 430 3221

Whangarei. Email: wingsnz@hotmail.com,

0800 TaneOra (0800 826 367)

info@wingsnz.org.nz

Kaitaia, Kaikohe, Kawakawa, Dargaville & Whangarei â&#x20AC;&#x2DC;Awakening the unique spirit of men to build safer, better communitiesâ&#x20AC;&#x2122;

71 Bank Street, Whangarei Phone 438 8046 Te Pou Whakawhirinaki o Aotearoa

cab.whngr@xtra.co.nz www.cab.org.nz

Website: www.wingsnz.org.nz

Look us up on facebook!

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The Law & the Disabled How 155 Community Law Centre can help

he Human Rights Act 1993, section 21 gives the following definition of a disability: Disability means any • Physical disability or impairment • Physical illness • Psychiatric illness • Intellectual or psychological disability or impairment • Any other loss or abnormality of psychological, physiological, or anatomical structure or function • Reliance on a guide dog, wheelchair, or other remedial means • Oresence in the body of organisms capable of causing illness (such as HIV or hepatitis). It seems that many in the community are unaware of the rights available to them when they have a disability. Also many people appear not to be aware that other members of society, particularly health providers and employers, have responsibilities under law to those affected by a disability. Two main pieces of New Zealand law specifically promote and protect human rights. These are the New Zealand Bill of Rights Act 1990 and the Human Rights Act 1993. The Bill of Rights Act 1990 protects the rights of individuals and legal entities (such as companies and incorporated societies) from the actions of the Government. In part, the Act

believe that their rights are being provides that you have the right to infringed upon. We have a number of freedom from discrimination on the staff with disabilities who consequently grounds of sex, marital status, religious can empathise with the issues facing belief, ethical belief, colour, race, ethnic disabled people, and we are keen to or national origins, disability, age, serve and assist. political opinion, employment status, As a community organisation we are family status, and sexual orientation. keen to ensure that members of the The Human Rights Act 1993 public know and understand their rights protects people in New Zealand from and responsibilities under law, and we discrimination in a number of areas intend to run Legal Education seminars of life. Discrimination occurs when for the public, starting in July of this a person is treated unfairly or less year. favourably than another person in Should any person be in need of the same or similar circumstances. legal assistance with matters relating The Human Rights Act lists the areas to their disability, or a disabled friend and grounds where discrimination is or relative, then they can contact 155 unlawful, e.g.: Community Law Centre and make an • Employment appointment to see one • Access to places, vehicles and of the legal staff on 09 437 7535 services. Mondays through Thursdays between • Provision of goods and services. 9.00am and 4.00pm, or email on • Provision of land, housing and other 155communitylaw@gmail.com accommodation. • Access to schools and other services The Act also provides for certain exemptions to this legislation, but in the case of disabled persons, only where it would be “unreasonable” to provide special access to any place or vehicle. At 155 Community Law Christina Cook LLB Centre we can Bridget Westenra LLB provide free consultations and Noela Fidow LLB, BA legal assistance Sally Woods LLB, BA to people who

Wheelchair access. Cook Westenra Ltd are specialists in the provision of legal advice and assistance, in relation to all aspects of family law, Wills and deceased estates,enduring powers of attorney and ACC law.

155 Community Law Receptionist Tash Wharehinga works with client Cheryl Paikea

COOK WESTENRA LTD, LAWYERS Level 3, 5 Hunt Street, P O Box 127, Whangarei

Telephone: 09 4597000 Facsimile: 09 4596280 reception@cookwest.co.nz www.cookwest.co.nz

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Blomfield Special School

Growing Special Education Network! Over the past year Blomfield has grown to be the Number One provider of Specialist Education alternatives in Tai Tokerau. Our new Transition Facility is complete and awesome. This a modern learning environment purpose built for our senior students includes a gym, a common room and a student-run cafe, a

and Resource Centre

Hard Technology Workshop, along with Textile and Food Technology spaces and an integrated computer suite. We are delighted with our progress in the Far North also. This year we have opened the purpose built Te Puna Aroha, our secondary school satellite at Kaitaia College. From this base we offer Work Experience, community activities and individualised curriculum programmes. It is great to be in the

heart of a major Secondary School, where our students enjoy the buzz of college life and have the safe learning hub that is Te Puna Aroha. Our Kaitaia Primary Satellite Unit is a well-established specialised environment that provides personalised learning to a range of Primary aged children. Did you know that Blomfield employ our own Occupational Therapists, Physiotherapist,

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Psychologist and Speech Language Therapist? That means that once your young person is enrolled with us they have direct on-going and intensive therapy support available to support their learning. Travelling to Kaitaia regularly is all part of the job for our dedicated Specialist Team! In Whangarei we also have the full range of educational options, from our Base

School to our Satellite Units, one at Morningside Primary school, where our Juniors have fun learning in a supportive primary environment , and also our Upper Primary/ Intermediate Unit at Manaia View School where students also enjoy the mix of mainstream school participation and individualised in class support.

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Contact us now to start planning for a more independent and enhanced lifestyle ph 09 459 6255 email ofﬁce@disabilityaids.co.nz web www.disabilityaids.co.nz

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Circus Kumarani Circus Kumarani is a community based organisation promoting circus and all that that entails

umarani Productions (AKA Circus Kumarani) is a community-based organisation that has been in operation for 10 years. All current staff are NZ Registered Teachers and/or trained community circus teachers. Our purpose is to improve the acceptance and inclusion of people of mixed abilities in society. By encouraging acceptance of difference

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and supporting resilience and the empowerment of individuals and groups through activities that promote self-worth and self-esteem we are contributing to positive community building. We use circus disciplines to engage with people and create an environment in which they can feel safe and free of judgement. We have developed an anti-bullying programme - B.R.A.V.E. (Be Respectful And Value Everyone). The programme is based on knowledge of our existing and previously delivered initiatives. It is built on the success of our Circus in Schools and Street Art programmes in that it explicitly addresses the anti-bullying messages, behaviours and attitudes. Bullying is not limited to any specific sector of our community and people living with disabilities are often the target of bullying behaviour. Some of our students who regularly attend classes have been with us since our early days. Ten years of involvement with Kumarani Productions have not dampened Jason Hopper’s enthusiasm for all things circus. The long-time resident of Greenways Trust has always thrown himself (sometimes literally) into learning new skills. “Jason has been a valuable member

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of our team from the very beginning,” says manager Jenny Huriwai. “His perseverance with each new challenge is an inspiration to all of us.” Jason obviously feels inspired too. “Circus has made me more confident,” he says. Circus Kumarani’s motto has always been ‘all ages, all abilities, whether or not they have disabilities” Jenny added. “What’s important is that everyone is open to learn some skills and ready to have fun.” Greenways Trust’s manager Dianne Fowlie sees the benefits for her clients having supported Circus Kumarani from the start. “Our guys are very independent and choose to be involved with circus,” she says. “It’s a great way for them to be involved in the community and make friends.” Recent research done by Circus Kumarani and funded by the Lotteries Commission highlights the numerous benefits of community circus. These include provision of an alternative to traditional sport and the way it connects people from all backgrounds. To access the research reports, visit www.circuskumarani.co.nz Teacher Adrian Humm says that what motivates him is seeing how students of all ages grow in confidence. “The more performances they take part in as members of our team, the more they develop as individuals. Of course, we get stronger as a group as well,” he adds. As well as running classes in Dargaville, when resources allow we can offer experiences for people in other parts of Northland. Come and see for yourself, we have a spectacular tenth anniversary show in Dargaville in November. Teacher Jo De Carvalho can’t wait for that one. “Our guys are rehearsing hard and we’ve got incredible guest performers lined up. It’s going to be huge.” Jason Hopper agrees. “I like circus because I can do things like the hoop and get lots of applause.” Contact Jenny Huriwai Phone: 09 439 5152

Health Passport What Is a Health Passport? A Health Passport is a patient-owned record that patients voluntarily choose to fill in and take with them when they visit a Northland DHB hospital service, to communicate their care and support needs. The Health Passport comes in the form of a booklet containing important information the patient wants those involved in their care to know. Patients may bring their Health Passport with them when attending a range of services such as: • attending an out-patient appointment • aresenting to ED • a day stay or • admitted to hospital for a longer period of time The Health Passport will be of interest to staff including: doctors, nurses, occupational therapists, physiotherapists, social workers, health care assistants, chaplains, reception staff, food service staff, orderlies and others.

Why is having a Health Passport important? The Health Passport assists staff to make decisions, provide service quality and safe care by minimising patient risks and ensuring patients and whanau have a positive experience while attending our services. Patients who choose to use a Health Passport maybe unable to communicate their specific care and support needs or are choosing to tell staff or volunteers what they want staff to know about themselves in a way in which they can be assured important information is available for staff to read, not missed and not require them to repeat some things, numerous times. Patients will have peace of mind, knowing that they are more likely to receive the medical treatment, care and support they would want, and not receive treatment or services in a way they would not want.

Where can you get a Health Passport? You can access a Health Passport from the Health and Disability Commission website: www.hdc.org.nz/about-us/disability/health-passport Organisation

Phone contact

Contact person

Northland DHB hospital and Via hospital community social workers. telephonists, or ward.

Social worker

Tiaho Trust, Whangarei

Receptionist

09 430 3406 or toll free 0800 430 3406

NORTHABLE

09 430 0988

Receptionist

IDEA Services, Whangarei

09 470 2000

Receptionist

Ngati Hine Health Trust

09 430 1248

Receptionist

Te Hau Ora O Kaikohe

09 405 2647

Receptionist

Te Hauora O Te Hiku O Te Ika

09 408 4024

Manager, Home Based Support Services.

Te Ha Oranga

09 439 3013

Receptionist or Mobile Nursing Service.

Hauora Hokianga

09 405 7709

Receptionist

Whangaroa Health Services

09 405 0355

Receptionist

Age Concern

Whangarei 438 8043

Receptionist

Mid North 09 407 4474 Receptionist Nationwide Health and Disability Advocacy Service

Far North 09 408 2997

Receptionist

09 4300166 or toll free: 0800 555 050

Whangarei Advocate

09 408 0006

Kaitaia Advocate

Patient’s General Practice/GP clinic The Health and Disability Commission website www.hdc.org.nz/about-us/disability/health-passport

Who Can Help you to record your care and support needs? There is a guide available to assist patients or their carers/guardians when writing information in the Passport. Other people may be family/ carers, Age Concern, Disability Support Agency Field Workers eg Stroke Foundation, Parkinson Society, MS Society, Deaf Aotearoa NZ, Royal NZ Foundation of the Blind. Support can also be provided by the Nationwide Health and Disability Advocacy Service: 09 4300166 or toll Whangarei Nationwide Health and free:0800 555 050 Advocate Disability Advocacy Service 09 4080006 Kaitaia Advocate

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Lions Club with Forget-Me-Not

that enhances the welfare not only of the clients but also of the carers and families who look after their loved ones at home on a 24 hour a day basis. The centre has capacity for 40 client visits per day. Staff is qualified, experienced and caring. The staff- client ratio is purposely set at 1:5 for maximum input. Our Hours The Centre has been purpose built for the community of the Whangarei District and is open from Monday to Friday from 8.30- 4pm for 50 weeks of the year. Our Programme The programme is structured with a variety of activities that provide motivation, rehabilitation, life skills, diversional therapy, holistic exercise, socialisation and fun. Activities include Tai Chi, indoor bowls challenges, singing, line dancing, table tennis and gardening, educational card games, painting lessons and quizzes, reading, maths and current affairs discussions. Guest speakers provide information and entertainment. Weekly excursions are arranged for The Forget Me Not Adult Day Centre is a day care ten pin bowling, swimming at the service provided by the Northland Disabled Aquatic Centre, Charitable Trust and available to the elderly, frail, exhibitions and for those with memory loss or other disabilities. bowls challenges. The reading / Open Monday to Friday from 8.30- 4pm maths lessons are for 49 weeks of the year. particularly popular

huge thank you from the Forget Me Not Centre to the Whangarei Lions Club The Whangarei Lions Club donated the timber and built the garden boxes for the clients of the Forget Me Not Centre. The vegetable garden programme is a huge success, with vegetables from it are being used for the client’s lunches and surplus being home with them. Many clients volunteer to help in the gardens on sunny days and join in the discussions of what should be planted. It is a fine example of community collaboration and success. Our Purpose The Centre is a day care service and available to adults of all ages. Clients have an age range from 25-103 years including those who are young with disabilities, the elderly and frail, those with memory loss or other disabilities. The Centre provides quality day care

Transport and a cooked lunch are provided daily. Programme content includes exercise, fun, companionship, challenges and excursions. All ages welcome

110 Boundary Rd, Tikipunga, Whangarei. 09-437 1144

with our younger clients. These are structured around learning for life-skills and enjoyment. Quiet Room The Forget Me Not Centre’s “One Stop Shop” concept is now a reality. The “Quiet Room” has been utilised by health professionals, social workers, and government department staff who are all welcome to use this room to visit their community clients in privacy. Clients find this service most beneficial as it means that they do not have to wait at home for appointments. Whanau Room The building of the Whanau room is now complete. This is an extension to the existing building and will provide ample room for meeting, activities and education sessions, cooking and activity classes. Meals A cooked lunch is provided daily for clients by our 2 chefs. A “take home” meals service is available for clients who require an evening meal. Meals are freshly cooked daily, are nutritious and take into consideration special dietary needs. Transport The three Forget Me Not vans and the van on loan from the Kamo Club collect the clients from their home each morning and return them home each afternoon. The transport pick-up areas are Maunu, Tikipunga, Onerahi, Kamo and Whangarei Central. Security The centre is secure, fully fenced, open plan and has ample secure parking.

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Providing Support

DEA Services is part of IHC New Zealand and provides support for people with an intellectual disability so they can live, learn, work and enjoy life as part of their community. Recently IDEA adopted a nationwide strategy titled “The Next Wave of Community Living” with a focus on reviewing our current service provision, and change the options we make available. This is essentially all about expanding the range of living options we could provide. Current kinds of services delivered are not disappearing; we intend only to add to the options.

Our support services include: Residential – Group Home Living We support from 1 to 5 people in a house - each person has their own bedroom and is encouraged to participate in the running of their home.

People are supported to be active socially and are encouraged to have friends and family over to stay or to share a meal. Each person living in the home is given the level of support they need including help with personal care, preparing meals or going out. Supported Living Our flexible support enables a person to be more independent and be part of local communities. We find out about the persons goals and wishes and develop an individual support plan to help with daily living and provide support to develop skills to become more independent. We work alongside a person in their own home or help them to find a home. Vocational and Day Services We support people to learn, work and enjoy life through accessing training opportunities to develop skills to be able to fully participate in the community. We also provide onsite special interest programmes to help develop hobby based skills such as

arts, crafts and gardening. We have an extensive programme for people to select from. Supported Employment For employers we know you need enthusiastic, loyal, motivated and trustworthy employees and that’s what we provide. We will help match the right person to the job, provide them with one to one support, and work alongside employers to support people to succeed in the workplace. Our support to you is free. Transition Services Is your family member in their last year of school? We support students to plan and move into further education, employment and local community activities in their last year of school.

IDEA Services 14-20 Clyde Street Whangarei Phone: 09 470-2000 email: northland@idea.org.nz web: www.idea.org.nz

‘Milly Tipu winning a place to compete in IDEA Has Talent in Northland, progressing for the semi’s held in Auckland. “When I ﬁrst entered the Idea Has Talent competition I didn’t know that it was going to turn out like that! I went to the Whangarei show and won it singing my waiata – it was very exciting.” IDEA is dedicated to providing the best possible support to people with intellectual disabilities and their families offering residential, supported living, vocational and supported employment services.

IDEA is an IHC Service in your community

Pleased to support International Day of Persons with Disabilities

AREA OFFICE 14-20 Clyde St, Whangarei Ph 09 470 2000 Email: northland@idea.org.nz www. Idea.org.nz

“Carey and Stephen at a beach clean-up program for the Whangarei District Council (IDEA: Vocational Services)

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Whakamana Hauora

hakamana Hauora is a selfmanagement programmefor people with long-term health conditions. The Whakamana Hauora programme, is delivered free, in local Tai Tokerau communities once a week, for two and a half hours over six weeks. It explores a range of topics such as healthy eating, managing difficult emotions, problem solving, goal setting and action planning. The course offers participants a range of tools and resources to change their lives for the better. Whakamana Hauora was developed for people with ongoing or chronic health conditions. Partners, whanau and support workers are also welcome and encouraged to attend. Trained leaders facilitate the sessions

and participants work together to understand their symptoms and develop self-management techniques that may help manage their conditions. One of the reasons Whakamana Hauora works so well is that all of the leaders who facilitate the programmehave a long-term health condition themselves or they support someone who does. This gives them real insight to the day-to-day management of a long-term health conditions and the effect it can have on our daily lives. Participants can vary in age and type of condition and the social benefits created by coming together can be both enlightening and encouraging. Once people attend the programme, they are always keen to share it with their whanau and friends. The insights gained can assist participants to manage their condition on a day-to-day basis. Te Ao is 38 and suffers with chronic

pain down the left side of her body which makes sitting, standing and walking painful. This led her to feel depressed and isolated from work and her social life. Te Ao was asked to join Whakamana Hauora. She said, “To be honest I did have doubts when I was first asked to attend the group, not really feeling open to address my condition or being around others. I didn’t understand what selfmanagement of my condition was until participating in this group. “The amazing power and dynamic of the group environment made me, and still inspires me to, take action and try and find solutions to any obstacles I may happen upon. “The positive outlook I now enjoy thanks to the experience of the programme has given me a confidence that I am grateful for and a lifestyle change that has allowed me a new start in life.”

TO ENROL OR FIND OUT MORE ABOUT THE PROGRAM CONTACT A FACILITATOR NEAREST TO YOU; Bay of Islands | Kerikeri | Kaikohe

Doubtless Bay / Kaitaia:

Margot Forrest 09 403 8147 Diane Henare 09 402 8562

Diane Henare 09 402 8562 Regency Pickering 021 077805

Kawakawa: Ngati Hine Health Trust, Karen Mackie 09 404 1551

Whangarei:

Whangaroa: Health Service, Hillary Sheard 09 405 0355 #865

Manaia PHO Erina Korohina: 09 438 1015

Home Support • Residential Services Independent Living Options Supported Independent Living Kuia and Kaumatua Programmes

Hours of Service Ofﬁce Hours Mon - Fri 8.30am-5.00pm Household Management Mon - Fri 8.00am-5.00pm other times by arrangement Personal Cares and Sleepovers available 7 days per week as per arrangement Kaumatua and Kuia are available if required. Please contact ofﬁce for further information on this service.

FREEPHONE 0800 737 573 KAWAKAWA OFFICE 2-4 Rayner Street Tel (09) 404 1551 Fax (09) 404 1876

WHANGAREI OFFICE Level 1/5 Walton Street Tel (09) 430 1248 Fax (09) 430 2385

Postal Address: PO Box 1127, Whangarei 0140

Home Support • Residential Services Independent Living Options Supported Independent Living Kuia and Kaumatua Programmes

FREEPHONE 0800 737 573 KAWAKAWA OFFICE 2-4 Rayner Street Tel (09) 404 1551 Fax (09) 404 1876

WHANGAREI OFFICE Level 1/5 Walton Street Tel (09) 430 1248 Fax (09) 430 2385

Postal Address: PO Box 1127, Whangarei 0140

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Right Place, Right Time

Business course caught my eye. Three hours per week plus study time, PLUS fees free. Even though I havenâ&#x20AC;&#x2122;t been at school or studied for some time I thought, I could do this, it shouldnâ&#x20AC;&#x2122;t be hard.â&#x20AC;? â&#x20AC;&#x153;One of my dreams is to establish a unique business. I knew I would have to do some study so I could gain the right knowledge and tools to point me in the right direction. â&#x20AC;&#x153;I have always imagined how I would like my business to look; I just needed some guidance and support for me to be able to turn my dream into reality. So I thought I wonâ&#x20AC;&#x2122;t know till I give it a go, what I have I got to lose; nothing.â&#x20AC;? With the encouragement of Jonny Wilkinson, Elinor was able to take the first step, ring and make an appointment. â&#x20AC;&#x153;After that it all fell into place: an interview, then a powhiri that I attended with a supportive friend. It was different for me. I felt a good wairua and aroha from the kaiako in their welcome towards myself and other new tauira on our journey with Te Wananga o Aotearoa at the Whangarei campus.â&#x20AC;? Elinor is glad she chose a contact course over studying from home. â&#x20AC;&#x153;Attending the classes each week, I am able to utilise the tools, knowledge and experiences of others as well as sharing my own.â&#x20AC;? Elinor believes that things happen for a reason, and hopes that others will be inspired by her example.

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e Wananga o Aotearoa student Elinor Niha is on a journey. It is one which she knew would take her far from her comfort zone but it has also led her to new experiences, people and knowledge. Elinor was born with Cerebral Palsy. Despite the different challenges that come with having a disability, Elinor is proving to herself and others that, just like anyone else, if you put your mind to something, you can achieve it. She knows she has to think about the extra time needed to get about, or whether there are a lot of stairs or heavy doors to navigate. â&#x20AC;&#x153;Planning ahead is always a good idea.â&#x20AC;? She also knows that sometimes she canâ&#x20AC;&#x2122;t predict every challenge that arises. â&#x20AC;&#x153;Even places where Iâ&#x20AC;&#x2122;ve been before,

something can turn up that makes a simple task a pain in the butt.â&#x20AC;? In 2010 Elinor was appointed president of the Disabled Persons Assembly Northland. The DPA is a New Zealandwide umbrella organisation representing people with all types of impairments, including physical, sensory, intellectual, psychiatric and neurological, acquired at any stage of life. It also encompasses a wide range of Disability Advocacy Organisations and Disability Service Providers, and gives invaluable support and advice to the families of people with disabilities. â&#x20AC;&#x153;DPA is a collective voice of people with disability in New Zealand based on principles of human rights and equal value of life,â&#x20AC;? adds Elinor. â&#x20AC;&#x153;I take pride in my work as I like giving things 100% of my ability and capability. I really think what you put into something is what you get out of it. I also believe in practising what you preach, which is why I think I was elected as the President of Disabled Persons Assembly Northland.â&#x20AC;? Choosing to study at Te Wananga o Aotearoa - the beginning of a new journey. It was through her involvement with the DPA that Elinor came across the free study programmes at Te Wananga o Aotearoa. â&#x20AC;&#x153;I remember sitting at the desk of Tiaho Trust CEO, Jonny Wilkinson, having a conversation when I saw a bright orange pamphlet, hard to miss, so I thought I would have a look. The First Steps to

GETTING

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Northlink Health Completes the Chain

well established organisation with a new name has begun providing home care throughout the Far North.”Northlink Health really began way back in 1977,” Northland manager Rick Boraston said. “Back then our CEO, Wendy Hawkings, started a private home nursing service from her home in Warkworth. In 1987 she

was asked to participate in a pilot scheme to test the viability of providing care for people in their own homes. The pilot was so successful that home support providers are now nationwide. “Wendy’s small service became the Rodney Health Trust, then the Rodney North Harbour Health Trust.” Several years ago the trust was awarded contracts by the Northland DHB and Ministry of Health to provide services throughout Northland. “We concentrated initially on providing services in Whangarei, Dargaville, Ruakaka and Mangawhai,” Mr Boraston said. “Now we are confident of our base in Northland and have the ability to invest in the infrastructure needed to operate in the Far North. We can now truly say we cover from the Harbour Bridge to Cape Reinga.”

Northlink Health Supports Special Olympics. Whangarei Special Olympics Vice Chairman, Martin Barrie receives a cheque which will help a team of athletes travel to Dunedin for the National Special Olympics Games in November.

PROUD: Iris Moore and Rick Boraston – proud to be providing the best of care

Far North co-ordinator Iris Moore will co-ordinate all care and support throughout the Far North from her base at Mangonui. Mr Boraston said she had a wealth of experience in the role, having being involved in providing home care and support for more than 20 years. And Ms Moore couldn’t wait to get started. “What’s different about Northlink is their attitude,” she said. “They’re all about ‘can do’ and take real pride in their service. That’s really refreshing, and it’s why I’m proud to represent them.”

Services can be available

7 days a week 24 hours a day If you would like to know more about the services we can provide, and for obligation free advice call us at your local ofﬁce.

Established 1977 Formally Rodney North Harbour Health Trust Providing Home Based Services From the Auckland Harbour Bridge (including West Auckand) to Cape Reinga

Call 0800 438 2727 Northlink Health’s Northland staff who coordinate care and support to clients in Mangawhai; Bream Bay; Dargaville; Whangarei and the Far North.

Email: whangarei@northlinkhealth.org.nz www.northlinkhealth.org.nz

Northlink Health is your local provider for all Home Based Support Services. We aim to provide quality services that will assist you to remain at home and to achieve optimum quality of life. HOW TO ACCESS SERVICES AND WHAT DOES IT COST? Services are provided free of charge if you meet the Criteria. We are happy to answer any questions you may have about this. Our proﬁts are returned to the community or invested in staff training to provide you with services of a professional standard Warkworth (Head Ofﬁce) Phone: (09) 425 9999

Orewa Ofﬁce Phone: (09) 424 2697

North Harbour Ofﬁce Phone: (09) 476 4966

Northland Ofﬁce - Whangarei Phone: (09) 438 2727

20 Auckland Road, Warkworth Fax: (09) 425 9346 Email: warkworth@northlinkhealth.org.nz

44 Doment Crescent, Orewa Fax: (09) 427 5245 Email: orewa@northlinkhealth.org.nz

Unit M, 101 Apollo Drive, Albany Fax: (09) 476 4977 Email: nthharbour@northlinkhealth.org.nz

30 Dyer Street Whangarei Fax: (09) 438 2738 Email: whangarei@northlinkhealth.org.nz

www.northlinkhealth.org.nz

GETTING

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The Papermill Charitable Trust

M O S T QUA

Z E A L A N D’

esteem of intellectually challenged people and at the same time offer vocational opportunities. The Papermill operates as a charitable trust, enabling papermakers to create art and quality products from their hand-crafted paper. The Papermill has come a long way from the humble beginnings of using a recycled baby’s bath, plastic fish containers, children’s sand buckets and an ancient wringer washing machine as the basic equipment. Custom designed equipment is now used in

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he Papermill is a creative space where artists with disabilities craft beautiful paper products. Here at the Papermill we train intellectually challenged and disabled people in the art of papermaking, and manufacture a wide range of paper products and works of art. Our papermakers also train visitors in the art of papermaking. The charity started in 1989 through the tireless efforts of a special person, Rhondda Rutherford-Dunn. The Papermill was set up to lift the self-

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the papermaking process, while still employing traditional techniques. The Papermill is recognised as a tourist attraction and an education, recycling and conservation centre, where workers earn admiration and respect for their abilities. It is also a place where the barriers and stigma of intellectual disabilities are broken down. The environmental education programme enables school children, tourists and visitors to be involved in the papermaking process and work alongside people whose gifts and abilities are different from their own. Our unique paper products include writing paper, envelopes, cards, wedding invitations, presentation folders, stationery packs, journals, books, photo albums, wine bottle covers, lampshades, 3-D artworks and wall art. Personalised orders are welcome. Two of the world’s top paper mills, New York’s Dieu Donne and Carriage House, have praised the paper made here. In October 2012 the Papermill moved from Otaika on the outskirts of Whangarei to the more centrally located building at 38 Kamo Road, Kensington. Visitors are always welcome and the Papermill is open weekdays from 10am to 3pm.

GETTING

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Cameron Leslie – Parafed Northland

hen all his mates were out at weekends doing Saturday sports, Cameron Leslie decided it was time to get involved and join in. “Obviously I couldn’t play rugby so I decided to learn to swim” says the 23 year old. Cameron walks on prosthetic legs so activity that jars can cause the joints to deteriorate. Swimming, therefore, seemed an ideal solution. He started out in a learn-to-swim programme and found he really enjoyed it, and the rest is history – or in this case, history in the making. At the 2008 Summer Paralympics he won a gold medal in the men’s 150m individual medley, breaking the previous world record by over a second with a time of 2:33.57. Returning for the 2012 Summer Paralympics he again won a gold medal in men’s 150m individual medley, beating his own world record with the time 2:25.98. There was a good amount of sacrifice involved in that achievement. Cameron trained nine and sometimes 11 times a week, each session an hour and a half duration. “I had a really boring lifestyle last year,” he says with a grin. This year is shaping up a little differently. Cameron graduated this time last year and has returned to Whangarei after an absence of five years, taking up a role as sports editor of the Northern Advocate. “Since I’ve been back I’ve also become a board member for Parafed Northland,” he says. Parafed provides opportunities for those with physical/ visual impairments to get involved in sport and recreation at all levels, and Cameron is a great believer in “what goes around comes around, especially in a small town. They helped me out a lot when I was a young swimmer, supporting me with finance for getting to competitions.” As for how this year is shaping up – “it’s about working, and staying in shape to be a half decent swimmer,” he says.

AllSports for All Kids! Halberg Disability Sport Foundation’s AllSports programme helps physically disabled young people get into sport! Visit us online to ﬁnd out how we can help you with funding and support, or phone Maia Lewis on 09 579 9931 for more information.

www.allsports.org.nz

GETTING

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Public Trust

aving someone else look after your financial affairs may seem a little scary but in fact, it can provide enormous benefits. Just ask the customer centre manager at Public Trust Whangarei, Lee Iwashita, who offers this kind of help under a service called Personal Assist - usually activated through an enduring power

of attorney, or a court appointment under the PPPR (Protection of Personal and Property Rights) Act. “One customer could no longer look after his farm due to advancing years. We were appointed as farm manager and manage the farm on his behalf, ensuring it runs according to the way he wants it looked after. He regularly visits and enjoys it much more now, without any stress.” Asking Lee what a typical customer looks like, she says, “Everybody is different, and there can

be a lot of variables in each person’s situation. The great thing is people can choose how much assistance they need. We’ve helped people with injuries manage payments from ACC, through to those who are grieving and just can’t cope with the thought of paying bills.” The key, according to Lee, is to come in to Public Trust and discuss your situation and how the team can help. “Most people feel instantly at ease, as we’re a pretty friendly bunch, not scary at all.” says Lee laughing. “We’ll discuss your circumstances and point you in the right direction without any obligation.” When asked about the benefits this service offers, Lee says adamantly, “Personal Assist provides huge support to people. I’ve even seen health improve just from taking away financial stress, which is pretty fantastic.”

A helping hand when you need at most

Talk to us today about Wills, pre-paid funeral trusts and family trusts. .publictrust.co.nz

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Sports Coaches with Special Olympics

Donald Ferguson

or more than 25 years the Special Olympics Whangarei committee has provided sports coaching for people in Whangarei who have an intellectual disability. People who cannot help themselves, but who get enormous pleasure and friendship from the sports training and social activities we provide. Without these opportunities they could well become isolated, bored and unhappy, as they cannot participate in regular sporting groups. Currently in Whangarei volunteers provide coaching in Indoor Bowls, Ten Pin Bowling, Athletics, Swimming,Equestrian and powerlifting.

Participation in these sports develops the athletes physical and emotional well being, as well as earning them recognition and acceptance in the community. The commitment by the coaches involved is amply rewarded through the gratitude and appreciation shown by the athletes for anything that is done for them. They are caring people and delightful to work with. Late November 2013 we are sending representatives from these sports plus their coaches ( 42 in total) to the Special Olympics National Games which will be held in Dunedin. National Games are only held every four years. To be eligible for these Games athletes must have been to a ribbon day 2011/ 2012 and a regional games ( 2 days) from July 2012 to end of June 2013. All our athletes and coaches have each payed $510 towards their travel to the National Games and the $550 which the organising Committee requires for everyone`s stay at the Games is being

KAMO CLUB IS PROUD TO SUPPORT THE

fundraised only by Special Olympics Whangarei. Sponsorship and donations are required by Special Olympics Whangarei for our local athletes to achieve the final part of getting to Dunedin and attend the National Games. Special Olympics wishes to thank anyone who is able to help our athletes achieve their goal and if the public out there wants to know more they may write to myself at P.O.Box1881 Whangarei,or e`mail Whangarei@ specialolympics.org.nz Andrew Langford: Mobile: 027-438-3993

Carey Nichols

Whangarei 10 Pin Bowling is proud to support the Special Olympics

SPECIAL OLYMPICS

7-11 Meldrum Street, Kamo, PO Box 4147, Kamo

Ph: 09 435 1765 â&#x20AC;˘ Fax: 09 435 0274 Website: www.kamoclub.co.nz

Bookings Highly Recommended Phone 438-1028 - Email 10pinwhg@xtra.co.nz

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Special Needs Educational Resource Library

ur resource library started in 1997, it started as a toy library and has grown to be one of the major players in Whangarei in providing services for the disabled. We would like to thank Z Energy Kamo for including us in the Good in the Hood programme for 2013 and their ongoing sponsorship. Our Special Needs Educational Resource Library provides equipment and learning aids to disabled children and adults in the greater Northland and Auckland areas. We operate a