Parent to Parent New Zealand Annual report 16 17

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Annual Report 2016-2017


Empowering

About Parent to Parent

families and

We are a not-for-profit started 34 years ago in New

whānau of people with disabilities

Zealand by parents of children with disabilities and health professionals. Every year hundreds of thousands of New Zealand families

and health

face the unique challenges of caring for a baby/child/teen with

impairments

It’s a family journey that is unplanned, often isolating them

through support and information.

disabilities/health impairments. from ‘regular’ families, and can seem overwhelming in different ways for all family members. We focus on the wrap-around family of the person with a disability – parents, step-parents, caregivers, brothers, sisters, grandparents and wider whānau. When they each feel informed, listened to and understood, it can empower them, not only individually but as a strong circle of support for their disabled family member.

connect inform support

Parent to Parent’s core family support services: 1.

Information and support on over 3600 different conditions and associated issues

2. Training volunteer Support Parents and connecting parents new to the world of disability with them 3. Supporting the brothers and sisters of children with disabilities. No other organisation in New Zealand offers these services. They are free, confidential, and mostly delivered by people who also have a child or sibling with a disability.

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Parent to Parent Annual Report 2017


Contents 4

The year in Review

8

We are nationwide

10

What we do

12

Nationwide statistics

14

Performance report

27

Supporters

Parent to Parent Annual Report 2017 |

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The 2016-2017 year in review We reported last year that it had been challenging and exciting with some significant changes especially in key personnel.

National Presid and Chief Execu As still relative newbies we can only reflect on the tireless work of those who committed to establishing Parent to Parent as a credible and key provider of a unique health and disability service. This year, in recognition of much of that work, our previous Chief Executive Anne Wilkinson, now a Life Member, received a Queen’s Service Medal. Change continued to be the primary 2016/17 theme when Jim Craig replaced another tireless contributor in Helen Johnson as President. We sincerely thank

The challenges and excitement have continued at quite a pace as a new management team was brought on board bringing a diverse range of expertise and knowledge for the benefit of this amazing organisation.

Helen for her work and leadership as President and her continuing commitment as a Board member. The new management is continuing to deliver quality, relevant services while at the same time responding to the changing environment as we consider new approaches while also confronting new issues along the way. Noel Cunneen completed his 12 month term as Chief Executive in June. However recognising the progress made following his system review in the early part of 2016, and the work still required, the Board unanimously invited him to continue for another period, during which time the recruitment process for a permanent Chief Executive will be initiated. It is expected that this will be completed by February 2018.

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Parent to Parent Annual Report 2017


dent utive report

Jim Craig, National President

Noel Cuneen, Chief Executive

The new management team had only been in place

appointing additional staff in greater Auckland

for a brief period at the time of the 2016 AGM when

implementing Parent to Parent�s long term policy to

we commented on our delight in attracting high

enhance our services in the Auckland region. Guy

calibre experienced people to the organisation. It

has also led a review of our Support Parent delivery

was disappointing to lose Julie Barnett, Executive

model. It is vital that this remains a core service, but

Manager, after eight months as she sought a post

recent feedback from new parents indicates that

more closely aligned to leading service delivery.

some may prefer an alternative approach to the

Her work in revising our financial systems has, and

current individual matching model.

will continue, to reap benefits in terms of efficiency, comprehensive monitoring and analysis of our finances. Pleasingly though, Julie was replaced through an internal promotion with Joanna Eastwood accepting a modified role which allowed her to continue leading our Support and Information team. As National Operations Manager Guy Ockenden has unreservedly, and to our benefit, shared his NZ Riding for the Disabled experience and knowledge. His understanding of what is required to support and enhance regional presence, volunteer engagement, revenue generating streams, plus his strong leadership skills has challenged us all to think and do differently. The outcome will be a stronger and wider engagement with communities, broader range and more consistent offering of support activities and extended presence nationally. We are currently

Resourcing core services, let alone growth and development, remains difficult and to that end we are embarking on a major fundraising programme in 2018. This will be in addition to funding received through government contracts and grant applications to philanthropic, community and gaming trusts. Following a negative financial outcome in the 2105 /16 year we report another such result for 2016/17. The financial issues resulting from the changes that Parent to Parent faced in the 2015/16 year have not yet been fully resolved in spite of the hard work and commitment of the Board and staff. This outcome is very disappointing and further strategies need to be agreed and implemented during 2018 to return Parent to Parent to surplus. As an assurance we are able to deliver effectively our core services within the financial resources on hand. Parent to Parent Annual Report 2017 |

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There is a sense that the funding environment

Family Leadership Alliance (FLA). Recently the Board

will change significantly in the next few years

made a financial commitment to support the agreed

and we need to ensure that we are equipped to

future work plan of the FLA as it seeks to establish

respond. Already one of our largest founders, Todd

itself as a vehicle to allow families to be heard.

Foundation, has signalled a move from funding individual organisations to a more collaborative multiorganisation project based approach. We have been part of their conversations guiding proposed changes and similarly hope to work with other funders as they review their modus operandi.

We have sought to broaden our existing connections with other agencies and establish new organisation relationships. One such development has resulted in Parent to Parent delivering tailored Support Parent training to the Cerebral Palsy Association. We have worked to build relationships with other organisations

Retaining government contracts, particularly in their

including The Parenting Place, Parents of NZ Vision

current form, is an area of uncertainty. We have a

Impaired, Carers NZ and Autism NZ. In the more

commitment for our own and joint contracts through

collaborative working environment being predicted,

until 2020 and wait with interest, some nervousness,

these relationships and other similar initiatives will be

but mostly excitement to see what approach

imperative.

government agencies will adopt in working with service providers in the future.

We could not let the opportunity pass to mention another recent development, which has those

With Sue Pairaudeau, Business Development

involved very excited, regarding its potential as

Manager, leading the way we have embarked on a

an information and support medium. We have

programme which includes a general membership

received from the IHC Foundation funding to air a

drive, extension of our donation base and creation of

radio programme for one year initially. It will be a

a sponsorship base. We are delighted at the response

30-minute weekly programme available to the 12 New

to the new logo launched early this year which is

Zealand access radio stations (recorded and aired

being used extensively in this work. We acknowledge

locally in Hamilton first). The content will focus on

that we need to re-engage with our grassroots and

specific disability and health issues and discuss the

connect with the wider community if this programme

challenges to, and responses from, families sharing

is to be successful. Greater connection is being

their individual experience.

progressed through the work of our Communications team leading to an enhanced and more consistent social media presence, improvement in the magazine and E- news communications and other promotional activities.

We continue to struggle to re-establish the strong financial position of a few years ago. However our commitment to our strategic goals of Go Nationwide and Be the Go To Organisation has for now meant that we are committed to acquiring the resources

We continue to maintain strong, beneficial

required, rather than compromising our growth plans.

relationships with our historical partners. At a contract

The board, in partnership with the management team,

level this includes Life Unlimited and SAMS with

continues to monitor expenditure and is committed to

which we respectively deliver the Altogether Autism

making prudent financial decisions.

and Care Matters services. The former is largely an extension of our core services to support family/ whÄ nau with children on the spectrum; the latter is part of a nationwide carer development strategy. Our relationship with SAMS plus Imagine Better forms the

The Board and management acknowledge that these goals will not be achieved without the equal commitment shown by our highly professional, hardworking staff. We are very grateful for them and their


d so ate l l o ic as c ecif tw p I s . iety ctly � rfe va r e t p ful. a e s e s i r u t “G !I lly ckly tota l l qui a and

outstanding work. The last year has been one of good

The contribution of Board Members must also be

progress towards our goals when, given the changes

acknowledged. In their already busy lives, they have

that occurred, it would have been easy to be in

made the time to guide and support the work of

maintenance mode. One area we do need to pick up

Parent to Parent. They have responded positively

the pace relates to the provision of our online learning

to the challenges of our financial position, contract

and training capability. This will be a primary objective

and other relationship issues, plus the need to

in the next 12 months.

recruit a new management team. They have always

Sincere thanks to all Support Parents for giving their time and energy to support other families. This service

endeavoured to keep the ideals and purpose of Parent to Parent to the forefront.

will, while the form might change, always be at the

Finally it is our pleasure to be part of an organisation

core of what we do in supporting families. Parent to

where all involved put the important work we do first.

Parent would not be able to support the hundreds of

It makes Parent to Parent an exciting place to work,

families nationwide without our Support Parents and

with our reward being able to assist our families to

other volunteers.

gain the strength, knowledge and capacity to have a

Demand continues to be strong for our information service. Thanks to the members of the matching and information team for their ongoing, quality work. A special mention here to those volunteers who

good life. Jim Craig, National President Noel Cunneen, Chief Executive

attend Sibcamps and assist with other parts of the SibSupport programme; a highly valued service and one which must grow exponentially over the next few years. Parent to Parent Annual Report 2017 |

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We are nationwide

T

he face of Parent to Parent in communities is our regional team in 11 regional offices around the country. This is a strong and motivated team responding to the individual needs and concerns of the parents/whānau coming to them. A passionate focus and a commitment to supporting families ensure an

team, the Regional Team is truly reaching into the

increasing reach into their communities.

of the Strategic Plan – not only being ‘the Go-To

There have been changes to the team and we are pleased to welcome Don Martin to Northland. We will add two more Regional Coordinators to the Auckland region, and in September recruit for a new person to replace Deb Broughton in Manawatu. With Parent to Parent for nine years, Deb’s will be big shoes to fill. Apart from being the direct, face-to-face contact – the ‘go-to’ person – Regional Coordinators also provide a number of courses and activities to people in their regions, such as Renew workshops, Support Parent training, SibSupport programmes, and coffee network groups. In the past year, the Parent to Parent team supported 367 new families by providing 290 Support Parent requests and a staggering 4103 information requests serving g a over 20 different ethnic groups. This is an increase of 255 information requests over the previous year. This underscores the value of our work to and with families. Working with the Support and Information

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Parent to Parent Annual Report 2017

wider New Zealand community. What is clear is the need for the services of the Regional Team to grow to support two ongoing aims organisation’, but being able to ‘Go Nationwide’. Working with our partners Altogether Autism and Care Matters we provide a wide range of services for families nationwide. In 2016-2017 Parent to Parent provided 454 different family based activities with a reach in to the community of 6539 people. In addition, we provided 115 different training opportunities for 1442 people. We stay in contact with our wider stakeholders through Facebook, Twitter, Instagram, Linked In, e-newsletters and the magazine. Our team wants to grow to provide an even greater level of support for more people. To do this we must develop, train and utilise those people with a passion for the work of Parent to Parent. In the next 12 months we aim to increase our volunteer base, provide a range of contact options for all New Zealanders, and work to ensure that we are responding to people in a culturally appropriate way. Guy Ockenden National Operations Manager


The regional team Northland Lynne Hansen (until May 2017) Don Martin (from May 2017)

Auckland Janette Allen (until July 2017), Elaine Gutteridge Waikato Carol Maynard, Christina Slade

Coastal Bay of Plenty Suzie Haynes

Central Lakes Breanna Turner

Manawatu Deb Broughton (until September 2017)

Wellington Sue Trueman, Sharyn Heathcote Nelson Trudi Meyer Greater Canterbury Laura Lightfoot, Andrew Oswin Otago Sheryl Davies

Southland MaryAnn Hughes d on, a goo in fo r m a ti c t ti s a e ta r n G a “F on. in fo r m a ti ra n g e o f e r y ti m e ly V . s s s e fu n e u ll fr o m a r e v o ly s e r v ic e d n ie fr y a to r .� a n d ve r n a l C o o r in th e R e g io

Info requests:

Autism Spectrum Disorder 68%

Diagnoses category

Mental Health 9%

Intellectual Disability 11%

Physical Disability 7% Personal Health and Sensory Disability

0.5%

Parent to Parent Annual Report 2017 |

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h wit e l b a e f o r t r s we r m o e Had lly c speak . a y l e lt r end oth “I fe one. B and fri me.” ti ry e v e r e l a x e d ya b l e lly enjo y r rea e av

What we do

Information

Parent Support

After a child’s diagnosis, parents often can’t absorb

Connecting with another parent who has ‘been there’

all the verbal information they receive from medical

can make a world of difference to parents/caregivers

professionals. They may be uncertain about who can

struggling to see what their family’s future will look like.

answer their ongoing questions. Our research team

We connect them with a volunteer Support Parent who

provides support and free evidence-based information on over 3600 common to very rare conditions; posted/ emailed information that is easy to understand, tailormade for a child’s specific condition/s, and in most languages. There is no limit to the requests a parent/whānau can make for information covering conditions – and all the issues surrounding them – from pre-birth to adulthood. We also receive information requests from early childcare learning centres, schools, workplaces and any organisation that works with, and for, people with disabilities and health impairments.

has a child with the same/similar condition or who has experienced similar issues. Support Parents are further enough along the track to feel confident to complete intensive training and ‘give back’ to new parents. By supporting parents through their challenges, they can become better equipped to focus on the gifts, skills and strengths of their child, and not let ‘disability’ block the path to a bright future. Children with and without disabilities thrive in families where this attitude prevails. Volunteer Support Parents nationwide offer practical ideas, strategies, a listening ear and hope.

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Parent to Parent Annual Report 2017


SibSupport

Workshops and support services

Our camps and programmes for the brothers and

We also offer programmes, seminars and workshops

sisters aged 8-18 of children with disabilities are run by

to address the needs of parents/whānau.

people who have been there too. SibSupport acknowledges the extra effort their ‘different’ home life demands, and that they are often their disabled sibling’s biggest fan and hero. It gives

Our workshops are: •

Renew – for parents new to the world of disability

Support Parents – intensive training (and refresher

them the chance to talk about issues such as feeling

courses) for parents volunteering to support

left out at home or bullying at school.

others

The relationship between siblings is vital – for happy

families, and because they will have the longest life relationship as parents age and eventually pass away.

SibCamps/SibShops/SibDays – for the brothers/ sisters aged 8-18 of people with disabilities

Sibling Leadership training – for those brothers

With a maturity beyond their years and the gift of

and sisters wanting to help children in the same

empathy, it is no surprise many siblings become

situation

SibCamp leaders and gravitate towards qualifications in the health and disability sectors.

Championing Your Needs – for families and professionals to learn how to be heard and advocate for a child’s educational and living needs

n! is fu nt p Cam onfide “Sib c ” ore m l too. e f e l f e I ys in m

Second Generation – adult siblings and parents/ whānau can develop a ‘whole family’ approach to lifelong care for their family member with a disability.

“ I ’ ve learn wors t som e tha e h av n e it thin me. gs I c Ther e an are sib t hat o do with my ther s can ’t.”

Parent to Parent Annual Report 2017 |

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Other support services include: Altogether Autism With Life Unlimited we jointly run Altogether Autism

Nationwide statistics (June 30 - 2016-July 1 2017)

Total information request

services from our national and 11 regional offices.

National 2879

It provides specialist information and access to

Regional 1224

professionals, as well as workshops for educators,

4103

health professionals and support people working

Support Parent requests

with people on the autism spectrum. It is based on theoretical, academic and clinical knowledge and delivered by specialist facilitators. Care Matters

National 163 Regional 127 290 Ethnicity

Info request

Support Parent request

were launched last year by the Ministry of Health

African

15

1

for delivery by SAMS (Standards and Monitoring

Asian

24

Chinese

74

Cook Island Maori

6

European

168

Fijian

1

Matters both aim to ensure carers are connected,

Indian

25

informed and able to access relief care.

Latin American

6

Middle Eastern

7

to Parent, is a learning and wellbeing service

Niuean

12

2

providing face-to-face events, web-based

NZ European

2453

168

resources and a freephone service. The Care

NZ Maori

266

27

Other

159

4

network of local knowledge and support, and its

Other Asian

3

2

facilitators keen to ensure face-to-face learning

Other European

64

10

opportunities relevant to local interests and needs.

Pacific Islander

30

1

Samoan

11

1

Southeast Asian

3

Collaboration

Tongan

1

Because of Parent to Parent’s history of success,

Unknown

775

60

it is often included at government policy level,

Total

4103

290

Two national services to support family carers

Services), Parent to Parent, and Carers New Zealand. The services, developed by carers for carers, assist people who support people with disabilities nationwide. The Carer Matching Service and Care

Care Matters, delivered by SAMS and Parent

Matters freephone 0508 236 236 operated by Parent to Parent, connects callers to its existing

Many facilitators are people who have had personal experience of the carer role.www.carematters.co.nz

7

6

1

working in collaboration with other sector organisations for social change to improve the lives of people with disabilities and their families.

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Parent to Parent Annual Report 2017

Complex request research Professional Expert Group

76

Consumber Expert Group

13


w w w

Website page views 39, 743 Magazine readership Facebook likes*

28,252

7164

636 LinkedIn connections 114 eNews database** 8,402 Twitter followers

*Total from 1 national and 11 regional Facebook pages ** Total of national and regional Mailchimp databases

“...w e LO VE t mag he S azin e. Su eptemb er ch publ icati a great on.�

Parent to Parent Annual Report 2017 |

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Performance report for the year ended 30 June 2017 Contents Non-Financial Information Entity Information 2 Statement of Service Performance

3

Financial Information: Statement of Financial Performance

4

Statement of Financial Position

5

Statement of Cash Flows 6

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Statement of Accounting Policies

7

Notes to the Performance Report

8

Parent to Parent Annual Report 2017


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Thank you to our funders Parent to Parent New Zealand acknowledges the support of the following organisations that provided funding in the 2016/17 year. •

Achieving Change for Children

Hamilton City Council

Redwood Trust

Charitable Trust

Healthcare Otago

Rehabilitation Welfare Trust

Acorn foundation - Dr Joan fund

Hutt Mana Trust

Rotary Club of Invercargill

Air Rescue Services

ILT Foundation

Rotorua District Council

Akarana Community Trust

Infinity Foundation

Sargood Bequest

Auckland Airport 12 days of Xmas

J B Swan Dudding Trust

Scots Presbyterian Church

Auckland Council

Joe Aspell Trust

Sir John Logan

Bay Trust

Kapiti Council

Sky City - Queenstown

Bendigo Valley Sports & Charitable

Kathleen Dorothy Kirkby Charitable

Sky City - Auckland Community Trust

Foundation

Trust

Southern Trust

Blogg Charitable Trust

Kingston Sedgefield Charitable Trust

Southern Victorian Charitable Trust

Blue Sky Community Trust

Lakeland Disability Trust

Star Buddy Charitable Trust

Blue Waters Community

Legacy Trust

T G Macarthy Trust

Calder Stewart

Len Reynolds Trust

Te Pou

Catholic Care

Life Unlimited

Tauranga Energy Community Trust

Catholic Charities Palmerston North

Lion Foundation

The Catholic Caring Foundation

Central Lakes Trust

Lotteries

The Lion Foundation

Christchurch City Council

Lou & Iris Fisher Charitable Trust

The Tidd Foundation

Christchurch Earthquake Recovery Trust

L W Nelson Charitable Trust

The Trust Community Charity

Community Organisation Grants

Mainland Foundation

The Trusts Community Foundation

Scheme (COGS) in 23 regions

Milverton Trust

The Warehouse

Community Post

Mt Wellington Foundation

Thomas G Macarthy Trust

Community Trust of Mid and South

Nelson Bays Community Foundation

Todd Foundation

Canterbury, and Southland

Nelson City Council - Community

Trust House Foundation

Investment Fund

Trust Waikato

Creative Tauranga

Dragon Community Trust

Network Tasman Charitable Trust

The Trust Community Foundation

Dunedin Casino Trust

Nikau Foundation

United Way

Dunedin City Council

Norah Howell

W Duncan Bickley

D V Bryant Trust

North and South Trust

W & M Bear

Eastern & Central Community Trust

Page Trust

Waikato WDFF Karamu Trust

Estate of G L Isaacs

Palmerston North City Council -

WEL Energy

Estate of Kathleen Alice Boyd

Community Services Council

Wellington Children's Foundation

First Sovereign Trust Limited

Pelorus Trust

Wellington City Council

Foundation North

Perpetual Guardian

Wellington Community Trust

Four Winds Foundation

Palmerston North Anglican Trust for

Whangarei District Council

Fresh Choice

Children

William Toomey

Frozen Funds

Polson Higgs - Dunedin Casino Trust

Ministry of Social Development Youth

Gallagher Trust

Pub Charity

Harcourts Foundation

Rata - The Canterbury Community Trust

Youth Town

Hawke's Bay Foundation

Rotorua Energy Charitable Trust

Z Energy Good In The Hood

Fund

Parent to Parent Annual Report 2017 |

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Parent to Parent New Zealand Inc PO Box 234 Hamilton 3204 0508 236 236 • national@paret2parent.org.nz www.parent2parent.org.nz


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