Parent to Parent Annual Report 2017-18

Page 1

Annual Report 2017-2018


Empowering families and whānau of people with disabilities and health impairments through support and information. About Parent to Parent We are a not-for-profit started 35 years ago in New Zealand by parents of children with disabilities and health professionals. Every year thousands of Kiwi families face the unique challenges of caring for a baby/child/teen with disabilities/health impairments. It’s a family journey that is unplanned, life-changing for family members, and often isolates them from ‘regular’ families and friends. We focus on the wellbeing of the wrap-around family – parents, step-parents, caregivers, brothers, sisters, grandparents and wider whānau. When they each feel informed, listened to and understood, they can then feel empowered, not only individually but as a strong circle of support for their disabled family member. Parent to Parent’s core family support services: 1.

Information and support on over 3600 different conditions and associated issues

2. Training volunteer Support Parents and connecting parents new to the world of disability with them 3. Supporting the brothers and sisters of children with disabilities. No other organisation in New Zealand offers these services. They are free, confidential, and mostly delivered by people who also have a child or sibling with a disability.


Contents 4

Family tree

6

What we do

8

The year in review

10

We are local

12

Statistics

14

Feedback

16

Supporters

18

Performance report


Families / Regional Coordinators

Support Parents

Magazine

Renew, Connect, Reflect - new parents

Website

Sibling Programmes

Informatio

Local News

Support Parent Training

Altogether Autism

Champio Needs -

Back O

Financial Sustainability

Stakeholder Relationships

Communications

Board Family Tree 4

| Parent to Parent Annual Report 2018

Train


/ WhÄ nau

on Officers

Care Matters

on Your

- advocacy

Researchers

Twitter

Facebook NZ

Youth Ambassadors

Facebook Local

Second Generation Workshops

Thought Leadership

EGL Workshops

Office

ning

Fundraising

HR

IT

EXTERNAL - Strategy & Vision INTERNAL - Monitoring & Stewardship

Parent to Parent Annual Report 2018 |

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What we do

Support and information After a child’s diagnosis, parents often can’t absorb all the verbal information they receive from medical

Parent Support Connecting with another parent who has ‘been there’ can make a world of difference to parents/caregivers struggling to see what their family’s future will look like.

professionals, and may have ongoing questions

We connect them with a volunteer Support Parent who

Google can’t answer.

has a child with the same/similar condition/issues with

Our research team provides support and free

lived experience.

evidence-based information on over 3600 common to

Volunteer Support Parents nationwide offer practical

very rare conditions; posted/emailed information that

ideas, strategies, a listening ear and hope. They are

is easy to understand, tailor-made for a child’s specific

further enough along the track to feel confident to

condition/s, and in most languages.

complete intensive training and ‘give back’ to new

There is no limit to the requests a parent/whānau can

parents.

make for information covering conditions – and all the

By supporting parents through their challenges, they

issues surrounding them – from pre-birth to adulthood.

can become better equipped to focus on the gifts,

We also receive information requests from early childcare learning centres, schools, workplaces, and any organisation or professional working with, and for, people with disabilities/health impairments.

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| Parent to Parent Annual Report 2018

skills and strengths of their child, and not let ‘disability’ block the path to a bright future. Children with and without disabilities thrive in families where this attitude prevails.


Workshops and support services •

Renew Connect & Reflect – for parents new to the world of disability

Support Parents – intensive training (and refresher courses) for parents volunteering to support others

SibSupport

sisters aged 8-18 of people with disabilities •

Championing Your Needs – for families and professionals to learn how to be heard and

people who have been there too.

advocate for a child’s educational and living needs

SibSupport acknowledges the extra effort their ‘different’ home life demands, and that they are often

Sibling Leadership training – for those brothers and sisters wanting to help children in the same situation

Our camps and programmes for the brothers and sisters aged 8-18 of children with disabilities are run by

SibCamps/SibShops/SibDays – for the brothers/

Anxiety Workshops – for parents of children

their disabled sibling’s biggest fan and hero. It gives

with anxiety issues and anyone else. Presented

them the chance to talk about issues such as feeling

in association with registered mental health and

left out at home or bullying at school.

intellectual disability nurse Matthew Peppercorn

The relationship between siblings is vital for the

Second Generation – a workshop to support

wellbeing of growing families. Siblings are closer

disabled people and their families/whānau to plan

generationally with similar interests and aspirations,

what the future could look like

and theirs is the longest life relationship as parents will age and eventually pass away.

Altogether Autism – delivered jointly with Life Unlimited from our national and regional offices.

With a maturity beyond their years and the gift of

It provides autism-specific, evidence-based

empathy, it is no surprise many siblings become

information

SibCamp leaders and gravitate towards qualifications in the health and disability sectors.

Care Matters - delivered by SAMS and Parent to Parent, Care Matters runs learning and wellbeing events, web-based resources and a freephone service. Many of our workshops are funded by Care Matters.

Parent to Parent Annual Report 2018 |

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Year in review

National President report

T

he past year has been one of change for Parent to Parent as the organisation continues to redefine itself to ensure its ongoing relevance and

supports for families.

port Parents working in local communities across the country. It is this direct Parent to Parent support that directly results in families feeling better able to cope, feeling less isolated in the support of their disabled

While change of this nature can be challenging for

family members, and ultimately leading to more en-

organisations such as Parent to Parent, with the

riched life opportunities for disabled people, fulfilling

changing dynamics of families, the need to proac-

the vision and purpose of Parent to Parent.

tively engage with younger families and the dramatic changes to Disability Support Services, such change

We are also deeply indebted to our researchers and

is an essential organisational response.

support and information team. They work to ensure

That Parent to Parent has recognised the need and

that information Parent to Parent makes available to

the potential of such change is directly reflective of

families provides the most up-to-date knowledge

its deep understanding of the needs of families and

and best practice in the field across a wide range of

its engagement with developments occurring in the

disabilities. It makes Parent to Parent the place to go

wider disability sector.

for sound and reliable knowledge.

However, innovation and change does not come with-

Finally, I express my sincere thanks and apprecia-

out its consequences. The need to invest to ensure

tion of the work of the Board in bringing Parent to

we are both robust and relevant going forward has

Parent through a time of change, to the successful

meant we have had to draw on accumulated asset.

appointment of our new CEO, and the setting of a

This does increase the financial vulnerability of the

forward-looking strategy that will ensure that the or-

organisation as we reposition to best ensure viability

ganisation continues to be relevant and vital into the

over the long term.

future.

What stands Parent to Parent in good stead over this time is the ongoing dedication and commitment of our Regional Coordinators and volunteers including Sup-

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| Parent to Parent Annual Report 2018

Lorna Sullivan National President


Chief Executive Officer report

K

ia ora koutou from all at Parent to Parent NZ, I have recently joined as CEO following a legal and governance career in the health and disability sectors and – more importantly for Parent to Parent – with 20 years’ experience as a parent of a young man with significant support needs and a great life. acknowledge the commitment, passion and creative thought Parent to Parent families demonstrate every day supporting their family members.

of volunteers who actively support families. We will be

As Lorna has noted in her president’s report, the 2018

partners. We acknowledge and thank our contrac-

financial year continued to provide challenges for us.

tual partners with whom we deliver most of our core

As we head into the 2019 year we renew our commit-

services; DIAS information and support (Ministry of

ment to find and release resource to support the vital

Health), Care Matters (SAMS) and Altogether Autism

and intelligent work of our local people in the regions

(Life Unlimited).

and our central research, support and information services. These services are the core of Parent to Parent and we know how important they are to the many families we support.

recognised and acknowledged as a thought leader, advancing the interests of families who will be empowered through their relationships with us. Our strategic partnerships are vital. We will ensure that our service offerings are innovative, aligned with EGL principles and valued and trusted by our key

All of this work rests on our staff and volunteers, steered by our board. I thank each of them for their commitment to Parent to Parent’s role supporting families, and I look forward to the positive changes that

The focus in our refreshed strategy is local – to work

the system transformation project and the embedding

directly with families in the ways they need us to work.

of EGL principles, offer to families and individuals

Our funding, grants and contracts will enable us to

living with disability and health conditions.

reach a broad demographic of families across all regions in New Zealand.

We will be there for families, supporting them through change as EGL is extended across the country.

Parent to Parent will be known as a leading voice in support of the life needs and aspirations of families. We will continue to develop and sustain a stable base

Jane Bawden Chief Executive Officer

Parent to Parent Annual Report 2018 |

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General Manager report - We are local

T

here have been a number of changes to the faces of the regional team over the last financial year and going forward into the next. As always, we recognise the contribution that staff have made and wish them all well in their future endeavours.

One of the bigger changes to our current structure was the appointment of two additional Regional Coordinators to work in the Auckland region and to reach more effectively into this large urban and culturally diverse area. However, the resignation of two members of this team has been a loss and has provided the opportunity to critically evaluate the

to connect with parents. In the last financial year the team offered 491 different types of activities connecting with over 7000 people. In addition, 188 training opportunities were offered attracting 2659 attendees. Providing the services of Altogether Autism and Care Matters has enabled us to target specific learning opportunities. In the next financial year we will develop this further with Care Matters workshops – especially those related to anxiety, which have proven extremely popular.

requirements in the region. We plan to meet with

In the past year the wider Parent to Parent team

Auckland parents in the near future to hear from

delivered on 245 Support Parent requests and 4124

them, and provide what they would like as a service

information requests to more than 20 different ethnic

from Parent to Parent.

groups. This reinforces the value of our work to,

The key role of a Regional Coordinator is to be the face of Parent to Parent in the community. In Manawatu we have extended that role and function

and with, families. Working with the Support and Information team, the regional team is truly reaching into the wider New Zealand community.

to be directly involved with the roll-out of Mana

There is more to do, and in the coming year the

Whaikaha (Enabling Good Lives). This is not only

focus of the organisation’s activities will be around

to better support parents coming to us, but also

increasing the capacity of the regional team. This

to provide leadership and development for Parent

will take a number of forms – not only increasing

to Parent as whole, especially other Regional

training opportunities and family based activities, but

Coordinators as this rolled out across the country.

also our presence. Plans under way to establish an

Regional Coordinators also provide a number of courses and activities to families in their regions.

office in Napier should be completed by the end of the year.

These include Renew, Connect and Reflect

Our team wants to grow and provide an even

workshops, Support Parent training, SibSupport

greater level of support for more people. To do this

programmes and coffee networking groups.

we must develop, train and utilise those people with

The regional team is continually looking at ways

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| Parent to Parent Annual Report 2018

a passion for the work of Parent to Parent. In the next 12 montwhs we aim to increase our volunteer


I greatly appreciate you giving my parents the opportunity to be recipients of the mum's and father's retreats in previous years. Our parents mean the world, and to see them happy, rejuvenated, and shown

The regional team (2017/2018 financial year)

Northland Don Martin

the same care they have given us during

Auckland North

our journey with [my sister] is a blessing.

Janette Allen (until July 2017)

Ka mau te wehi – you are awesome!

Elaine Gutteridge (from July 2017) Auckland Central Joanne Evans (until October 2018)

base, provide a range of contact options for all New Zealanders, and work to ensure that we are responding to people in a culturally appropriate way. The national operations for Parent to Parent are

Auckland South Suki Kaur (until October 2018) Waikato Carol Maynard (until July 2018)

funded both by Government contracts we have

Helen Smith (from August 2018)

earned, and philanthropic, charitable and gaming

Christina Slade (Administration)

trusts. Without their support and willingness to fund our operations we would not be able to offer services to families around New Zealand. We are indebted to their confidence in us to do our work. A full list of funders is on page 16 of this report. As part of an ongoing understanding of the value communities across the country have for Parent to Parent, we acknowledge the Gifts in Kind regions and national operations have received. These range from service discounts, tickets to family events,

Coastal Bay of Plenty Suzie Haynes (until October 2018) Jane Ford (from October 2018) Central Lakes Breanna Turner Manawatu Debra Broughton (until August 2017) Janine Morrah (from January 2018)

donations to Christmas parties, and a host of small

Wellington

contributions that make everything we do just that

Sue Trueman

little better. In the last financial year this equated to

Sharyn Heathcote (Administration)

over $300,000 – that is a lot of support. I would like to offer my thanks to the team. Their

Nelson Trudi Meyer

energy, passion and drive to support parents and families is inspirational. Their determination to do

Greater Canterbury

their very best, sometimes with very little, shows

Laura Lightfoot (until September 2018)

their commitment and engagement. They are

Joanna Hannah (from November 2018)

hardworking and dedicated, with big hearts. They also enjoy a great sense of humour which keeps them grounded and enjoyable to work alongside. Guy Ockenden General Manager

Andrew Oswin Otago Sheryl Davies Southland MaryAnn Hughes

Parent to Parent Annual Report 2018 |

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Statistics (June 30 - 2017-July 1 2018)

Information requests

Ethnicity

Info request

African

12

Asian

25

4

Chinese

42

6

Mental health 6%

Cook Island Maori

6

3

Physical disability 3%

European

66

5

Fijian

2

Indian

58

8

Latin American

12

2

Middle Eastern

5

1

Total information request Info No. of requests families

Niuean

1

NZ European

2383

117

National 2841 791

NZ Maori

359

25

Other

89

7

Other Asian

23

2

Other European

75

12

Pacific Islander

93

Samoan

8

Southeast Asian

7

Tongan

11

Unknown

844

52

Total

4124

245

Diagnoses category: Autism spectrum disorder

82%

Intellectual disability 5%

Personal health and sensory disability

3%

Nationwide statistics

Regional 1283

839

4124

1280

Complex referred requests Professional Expert Group

70

Consumer Reference Group

3

Support parent requests Number of families supported

225

Total number of support parents 245 National support parent requests

158

Local support parent requests

87

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| Parent to Parent Annual Report 2018

Support Parent request

1


Digital media Website page views

66,191

Magazine readership

230,000

Facebook likes* 8510 Twitter followers

895

LinkedIn connections

250

eNews database** 10,440 Podcast page views

1048

* Annual total from 1 national and 11 regional Facebook pages ** Annual total for national and regional Mailchimp databases

Events 2018

May 21-31 Kiwi Celebs Create for a Cause On Trade Me with art couriered courtesy of Fastway Couriers Waikato. Connected with an estimated 1.7 million people.

2019

March 3 SafeSquares At Bunnings stores throughout NZ.

July 21-31 Kiwi Celebs Create for a Cause On Trade Me.

October 20 Wheely Wild At Hampton Downs. Seeking sponsors.


Feedback

I have laminated the 10 practical

tips for classroom aids of autistic

children info. I refer to this often.

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| Parent to Parent Annual Report 2018

Good to be able to relate with someone who has been through the same. ‘L’ was very supportive, helpful and practical.”

I love it, it is a great publication.


Thank you for your support and information. Sometimes life is very isolating and its comforting to read others understand and are in a similar position.We’re not alone (that’s a choice!)

It’s a great magazine to see in doctors offices and

other places, just to get the message out there that

our families look like any other (a chaotic mess!).

I had no idea this valuable service even existed and was delighted when I spoke to the lady on the phone. I’m telling the

other mums at school who have little ones struggling with some challenges about my very positive experiences with Parent to Parent. Thank you for all that you do!

I just wanted to say (rather late as we spoke a few

weeks ago) a huge thank you for connecting me with

the support parent. It was amazing to talk to someone who just got it – this journey with your child that’s

unique, scary, fabulous, full of joy and exhaustion. She was amazing. Your service is invaluable.

Parent to Parent have been a wonderful support network and resource for our family.

We have faced various challenges during our journey as the support behind T’s journey; each hurdle unique to each individual in our family. Parent to Parent has always been

there; sharing with us opportunities to help us grow during challenging times alongside her. The value of this support is immeasurable. We are a stronger, more loving and connected whanau because we have the support we need to support her in ways in which we would not otherwise have known and struggled to figure out ‘how’.

Great, it answered a lot of our questions and certainly gave us some good info on how to let both my son and his classmates,

and other people in general, about the new diagnosis. Also gave

us a good base of knowledge for what to expect.

The support was excellent and one day, when life calms down, I hope to be able to offer my services in return.

Parent to Parent Annual Report 2018 |

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Supporters Parent to Parent New Zealand acknowledges the support of the following organisations that provided funding . . . . •

Achieving Change for Children

Hamilton City Council

Rehabilitation Welfare Trust

Charitable Trust

Healthcare Otago

Rotary Club of Invercargill

Acorn foundation - Dr Joan fund

Hutt Mana Trust

Rotorua District Council

Air Rescue Services

ILT Foundation

Sargood Bequest

Akarana Community Trust

Infinity Foundation

Scots Presbyterian Church

Auckland Airport 12 days of Xmas

J B Swan Dudding Trust

Sir John Logan Campbell

Auckland Council

Joe Aspell Trust

Sky City - Queenstown

Bay Trust

Kapiti Council

Sky City - Auckland Community Trust

Bendigo Valley Sports & Charitable

Kathleen Dorothy Kirkby Charitable

Southern Trust

Trust

Southern Victorian Charitable Trust

Foundation •

Blogg Charitable Trust

Kingston Sedgefield Charitable Trust

Star Buddy Charitable Trust

Blue Sky Community Trust

Lakeland Disability Trust

T G Macarthy Trust

Blue Waters Community

Legacy Trust

Te Pou

Calder Stewart

Len Reynolds Trust

Tauranga Energy Community Trust

Catholic Care now The Common Good

Life Unlimited

The Catholic Caring Foundation

Foundation

Lion Foundation

The Lion Foundation

Catholic Charities Palmerston North

Lotteries

The Tidd Foundation

Central Lakes Trust

Lou & Iris Fisher Charitable Trust

The Trust Community Charity

Christchurch City Council

L W Nelson Charitable Trust

The Trusts Community Foundation

Christchurch Earthquake Recovery Trust

Mainland Foundation

The Warehouse

Community Organisation Grants

Milverton Trust

Thomas G Macarthy Trust

Scheme (COGS) in 23 regions

Mt Wellington Foundation

Todd Foundation

Community Post

Nelson Bays Community Foundation

Trust House Foundation

Community Trust of Mid and South

Nelson City Council - Community

Trust Waikato

Canterbury, and Southland

Investment Fund

The Trust Community Foundation

Creative Tauranga

Network Tasman Charitable Trust

United Way

Dragon Community Trust

Nikau Foundation

W Duncan Bickley

Dunedin Casino Trust

Norah Howell

W & M Bear

Dunedin City Council

North and South Trust

Waikato WDFF Karamu Trust

D V Bryant Trust

Page Trust

WEL Energy

Eastern & Central Community Trust

Palmerston North City Council -

Wellington Children's Foundation

Estate of G L Isaacs

Community Services Council

Wellington City Council

Estate of Kathleen Alice Boyd

Pelorus Trust

Wellington Community Trust

First Sovereign Trust Limited

Perpetual Guardian

Whangarei District Council

Foundation North

Palmerston North Anglican Trust for

William Toomey

Four Winds Foundation

Children

Ministry of Social Development Youth

Fresh Choice

Polson Higgs - Dunedin Casino Trust

Frozen Funds

Pub Charity

Youth Town

Gallagher Trust

Rata - The Canterbury Community Trust

Z Energy Good In The Hood

Harcourts Foundation

Rotorua Energy Charitable Trust

Hawke's Bay Foundation

Redwood Trust

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| Parent to Parent Annual Report 2018

Fund


. . . . and the businesses and organisations who provided discounts and gifts in kind in the 2017/18 year. •

Annabelle White

NZME Christmas Party at Mystery Creek

Annex Group (NZPC)

Photographer Keith Maynard

Autism NZ Bowling Day

Platform Plus

Autism NZ 3 Lego Sets

Quiz night

Circus Quirkus Family event

Rainbow confectionary

Commodore Free Hotel Room

Razza Matazz

Complimentary Drink Sib Parent

Rhema Media

Daytona Raceway

Robertson Fulton

Discount Sib surf day

Room Hire

Fastway Couriers Waikato

Scorch Design

Foster Childres Pool Day

Southern Stars Charitable Trust

Framing House

Special Rigs for Special Kids

Funfest Charitable Trust

Splash Pool party

Going Bananas Family Event

Susie Trenwith: Parent

Hypercube

Te Kaha - Christmas party

IDFNZ / Kids Foundation AKL

Ten Pin Bowling Parties

In My Soap Pot

Timaru Train rides

Kids Day Out Variey Show

Trade Me

Kidzone

Vegeboys

Mage Air

Warehouse

Mailmonk

Whitakers

Megazone tickets

Wintec School of Media Arts

New World Brookfield

World Festival of Magic

NZ Care

Parent to Parent Annual Report 2018 |

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Performance report

For the year ended 30 June 2018

Contents Non-Financial Information Entity Information 3 Approval of Financial Report

5

Financial Information: Statement of Service Performance

6

Statement of Financial Performance

7

Statement of Financial Position

8

Statement of Cash Flows

9

Statement of Accounting Policies

10

Notes to the Performance Report

12

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| Parent to Parent Annual Report 2018




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Page 9


Page 10


Page 12


Page 13


Empathy

Integrity

Values

Families supporting families

Aspiration


Parent to Parent New Zealand Inc PO Box 234 Hamilton 3204 0508 236 236 • national@parent2parent.org.nz www.parent2parent.org.nz


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