Annual Report 2017-2018
Empowering families and whānau of people with disabilities and health impairments through support and information. About Parent to Parent We are a not-for-profit started 35 years ago in New Zealand by parents of children with disabilities and health professionals. Every year thousands of Kiwi families face the unique challenges of caring for a baby/child/teen with disabilities/health impairments. It’s a family journey that is unplanned, life-changing for family members, and often isolates them from ‘regular’ families and friends. We focus on the wellbeing of the wrap-around family – parents, step-parents, caregivers, brothers, sisters, grandparents and wider whānau. When they each feel informed, listened to and understood, they can then feel empowered, not only individually but as a strong circle of support for their disabled family member. Parent to Parent’s core family support services: 1.
Information and support on over 3600 different conditions and associated issues
2. Training volunteer Support Parents and connecting parents new to the world of disability with them 3. Supporting the brothers and sisters of children with disabilities. No other organisation in New Zealand offers these services. They are free, confidential, and mostly delivered by people who also have a child or sibling with a disability.
Contents 4
Family tree
6
What we do
8
The year in review
10
We are local
12
Statistics
14
Feedback
16
Supporters
18
Performance report
Families / Regional Coordinators
Support Parents
Magazine
Renew, Connect, Reflect - new parents
Website
Sibling Programmes
Informatio
Local News
Support Parent Training
Altogether Autism
Champio Needs -
Back O
Financial Sustainability
Stakeholder Relationships
Communications
Board Family Tree 4
| Parent to Parent Annual Report 2018
Train
/ WhÄ nau
on Officers
Care Matters
on Your
- advocacy
Researchers
Facebook NZ
Youth Ambassadors
Facebook Local
Second Generation Workshops
Thought Leadership
EGL Workshops
Office
ning
Fundraising
HR
IT
EXTERNAL - Strategy & Vision INTERNAL - Monitoring & Stewardship
Parent to Parent Annual Report 2018 |
5
What we do
Support and information After a child’s diagnosis, parents often can’t absorb all the verbal information they receive from medical
Parent Support Connecting with another parent who has ‘been there’ can make a world of difference to parents/caregivers struggling to see what their family’s future will look like.
professionals, and may have ongoing questions
We connect them with a volunteer Support Parent who
Google can’t answer.
has a child with the same/similar condition/issues with
Our research team provides support and free
lived experience.
evidence-based information on over 3600 common to
Volunteer Support Parents nationwide offer practical
very rare conditions; posted/emailed information that
ideas, strategies, a listening ear and hope. They are
is easy to understand, tailor-made for a child’s specific
further enough along the track to feel confident to
condition/s, and in most languages.
complete intensive training and ‘give back’ to new
There is no limit to the requests a parent/whānau can
parents.
make for information covering conditions – and all the
By supporting parents through their challenges, they
issues surrounding them – from pre-birth to adulthood.
can become better equipped to focus on the gifts,
We also receive information requests from early childcare learning centres, schools, workplaces, and any organisation or professional working with, and for, people with disabilities/health impairments.
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| Parent to Parent Annual Report 2018
skills and strengths of their child, and not let ‘disability’ block the path to a bright future. Children with and without disabilities thrive in families where this attitude prevails.
Workshops and support services •
Renew Connect & Reflect – for parents new to the world of disability
•
Support Parents – intensive training (and refresher courses) for parents volunteering to support others
•
SibSupport
sisters aged 8-18 of people with disabilities •
•
Championing Your Needs – for families and professionals to learn how to be heard and
people who have been there too.
advocate for a child’s educational and living needs
SibSupport acknowledges the extra effort their ‘different’ home life demands, and that they are often
Sibling Leadership training – for those brothers and sisters wanting to help children in the same situation
Our camps and programmes for the brothers and sisters aged 8-18 of children with disabilities are run by
SibCamps/SibShops/SibDays – for the brothers/
•
Anxiety Workshops – for parents of children
their disabled sibling’s biggest fan and hero. It gives
with anxiety issues and anyone else. Presented
them the chance to talk about issues such as feeling
in association with registered mental health and
left out at home or bullying at school.
intellectual disability nurse Matthew Peppercorn
The relationship between siblings is vital for the
•
Second Generation – a workshop to support
wellbeing of growing families. Siblings are closer
disabled people and their families/whānau to plan
generationally with similar interests and aspirations,
what the future could look like
and theirs is the longest life relationship as parents will age and eventually pass away.
•
Altogether Autism – delivered jointly with Life Unlimited from our national and regional offices.
With a maturity beyond their years and the gift of
It provides autism-specific, evidence-based
empathy, it is no surprise many siblings become
information
SibCamp leaders and gravitate towards qualifications in the health and disability sectors.
•
Care Matters - delivered by SAMS and Parent to Parent, Care Matters runs learning and wellbeing events, web-based resources and a freephone service. Many of our workshops are funded by Care Matters.
Parent to Parent Annual Report 2018 |
7
Year in review
National President report
T
he past year has been one of change for Parent to Parent as the organisation continues to redefine itself to ensure its ongoing relevance and
supports for families.
port Parents working in local communities across the country. It is this direct Parent to Parent support that directly results in families feeling better able to cope, feeling less isolated in the support of their disabled
While change of this nature can be challenging for
family members, and ultimately leading to more en-
organisations such as Parent to Parent, with the
riched life opportunities for disabled people, fulfilling
changing dynamics of families, the need to proac-
the vision and purpose of Parent to Parent.
tively engage with younger families and the dramatic changes to Disability Support Services, such change
We are also deeply indebted to our researchers and
is an essential organisational response.
support and information team. They work to ensure
That Parent to Parent has recognised the need and
that information Parent to Parent makes available to
the potential of such change is directly reflective of
families provides the most up-to-date knowledge
its deep understanding of the needs of families and
and best practice in the field across a wide range of
its engagement with developments occurring in the
disabilities. It makes Parent to Parent the place to go
wider disability sector.
for sound and reliable knowledge.
However, innovation and change does not come with-
Finally, I express my sincere thanks and apprecia-
out its consequences. The need to invest to ensure
tion of the work of the Board in bringing Parent to
we are both robust and relevant going forward has
Parent through a time of change, to the successful
meant we have had to draw on accumulated asset.
appointment of our new CEO, and the setting of a
This does increase the financial vulnerability of the
forward-looking strategy that will ensure that the or-
organisation as we reposition to best ensure viability
ganisation continues to be relevant and vital into the
over the long term.
future.
What stands Parent to Parent in good stead over this time is the ongoing dedication and commitment of our Regional Coordinators and volunteers including Sup-
8
| Parent to Parent Annual Report 2018
Lorna Sullivan National President
Chief Executive Officer report
K
ia ora koutou from all at Parent to Parent NZ, I have recently joined as CEO following a legal and governance career in the health and disability sectors and – more importantly for Parent to Parent – with 20 years’ experience as a parent of a young man with significant support needs and a great life. acknowledge the commitment, passion and creative thought Parent to Parent families demonstrate every day supporting their family members.
of volunteers who actively support families. We will be
As Lorna has noted in her president’s report, the 2018
partners. We acknowledge and thank our contrac-
financial year continued to provide challenges for us.
tual partners with whom we deliver most of our core
As we head into the 2019 year we renew our commit-
services; DIAS information and support (Ministry of
ment to find and release resource to support the vital
Health), Care Matters (SAMS) and Altogether Autism
and intelligent work of our local people in the regions
(Life Unlimited).
and our central research, support and information services. These services are the core of Parent to Parent and we know how important they are to the many families we support.
recognised and acknowledged as a thought leader, advancing the interests of families who will be empowered through their relationships with us. Our strategic partnerships are vital. We will ensure that our service offerings are innovative, aligned with EGL principles and valued and trusted by our key
All of this work rests on our staff and volunteers, steered by our board. I thank each of them for their commitment to Parent to Parent’s role supporting families, and I look forward to the positive changes that
The focus in our refreshed strategy is local – to work
the system transformation project and the embedding
directly with families in the ways they need us to work.
of EGL principles, offer to families and individuals
Our funding, grants and contracts will enable us to
living with disability and health conditions.
reach a broad demographic of families across all regions in New Zealand.
We will be there for families, supporting them through change as EGL is extended across the country.
Parent to Parent will be known as a leading voice in support of the life needs and aspirations of families. We will continue to develop and sustain a stable base
Jane Bawden Chief Executive Officer
Parent to Parent Annual Report 2018 |
9
General Manager report - We are local
T
here have been a number of changes to the faces of the regional team over the last financial year and going forward into the next. As always, we recognise the contribution that staff have made and wish them all well in their future endeavours.
One of the bigger changes to our current structure was the appointment of two additional Regional Coordinators to work in the Auckland region and to reach more effectively into this large urban and culturally diverse area. However, the resignation of two members of this team has been a loss and has provided the opportunity to critically evaluate the
to connect with parents. In the last financial year the team offered 491 different types of activities connecting with over 7000 people. In addition, 188 training opportunities were offered attracting 2659 attendees. Providing the services of Altogether Autism and Care Matters has enabled us to target specific learning opportunities. In the next financial year we will develop this further with Care Matters workshops – especially those related to anxiety, which have proven extremely popular.
requirements in the region. We plan to meet with
In the past year the wider Parent to Parent team
Auckland parents in the near future to hear from
delivered on 245 Support Parent requests and 4124
them, and provide what they would like as a service
information requests to more than 20 different ethnic
from Parent to Parent.
groups. This reinforces the value of our work to,
The key role of a Regional Coordinator is to be the face of Parent to Parent in the community. In Manawatu we have extended that role and function
and with, families. Working with the Support and Information team, the regional team is truly reaching into the wider New Zealand community.
to be directly involved with the roll-out of Mana
There is more to do, and in the coming year the
Whaikaha (Enabling Good Lives). This is not only
focus of the organisation’s activities will be around
to better support parents coming to us, but also
increasing the capacity of the regional team. This
to provide leadership and development for Parent
will take a number of forms – not only increasing
to Parent as whole, especially other Regional
training opportunities and family based activities, but
Coordinators as this rolled out across the country.
also our presence. Plans under way to establish an
Regional Coordinators also provide a number of courses and activities to families in their regions.
office in Napier should be completed by the end of the year.
These include Renew, Connect and Reflect
Our team wants to grow and provide an even
workshops, Support Parent training, SibSupport
greater level of support for more people. To do this
programmes and coffee networking groups.
we must develop, train and utilise those people with
The regional team is continually looking at ways
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| Parent to Parent Annual Report 2018
a passion for the work of Parent to Parent. In the next 12 montwhs we aim to increase our volunteer
“
I greatly appreciate you giving my parents the opportunity to be recipients of the mum's and father's retreats in previous years. Our parents mean the world, and to see them happy, rejuvenated, and shown
The regional team (2017/2018 financial year)
Northland Don Martin
the same care they have given us during
Auckland North
our journey with [my sister] is a blessing.
Janette Allen (until July 2017)
Ka mau te wehi – you are awesome!
Elaine Gutteridge (from July 2017) Auckland Central Joanne Evans (until October 2018)
base, provide a range of contact options for all New Zealanders, and work to ensure that we are responding to people in a culturally appropriate way. The national operations for Parent to Parent are
Auckland South Suki Kaur (until October 2018) Waikato Carol Maynard (until July 2018)
funded both by Government contracts we have
Helen Smith (from August 2018)
earned, and philanthropic, charitable and gaming
Christina Slade (Administration)
trusts. Without their support and willingness to fund our operations we would not be able to offer services to families around New Zealand. We are indebted to their confidence in us to do our work. A full list of funders is on page 16 of this report. As part of an ongoing understanding of the value communities across the country have for Parent to Parent, we acknowledge the Gifts in Kind regions and national operations have received. These range from service discounts, tickets to family events,
Coastal Bay of Plenty Suzie Haynes (until October 2018) Jane Ford (from October 2018) Central Lakes Breanna Turner Manawatu Debra Broughton (until August 2017) Janine Morrah (from January 2018)
donations to Christmas parties, and a host of small
Wellington
contributions that make everything we do just that
Sue Trueman
little better. In the last financial year this equated to
Sharyn Heathcote (Administration)
over $300,000 – that is a lot of support. I would like to offer my thanks to the team. Their
Nelson Trudi Meyer
energy, passion and drive to support parents and families is inspirational. Their determination to do
Greater Canterbury
their very best, sometimes with very little, shows
Laura Lightfoot (until September 2018)
their commitment and engagement. They are
Joanna Hannah (from November 2018)
hardworking and dedicated, with big hearts. They also enjoy a great sense of humour which keeps them grounded and enjoyable to work alongside. Guy Ockenden General Manager
Andrew Oswin Otago Sheryl Davies Southland MaryAnn Hughes
Parent to Parent Annual Report 2018 |
11
Statistics (June 30 - 2017-July 1 2018)
Information requests
Ethnicity
Info request
African
12
Asian
25
4
Chinese
42
6
Mental health 6%
Cook Island Maori
6
3
Physical disability 3%
European
66
5
Fijian
2
Indian
58
8
Latin American
12
2
Middle Eastern
5
1
Total information request Info No. of requests families
Niuean
1
NZ European
2383
117
National 2841 791
NZ Maori
359
25
Other
89
7
Other Asian
23
2
Other European
75
12
Pacific Islander
93
Samoan
8
Southeast Asian
7
Tongan
11
Unknown
844
52
Total
4124
245
Diagnoses category: Autism spectrum disorder
82%
Intellectual disability 5%
Personal health and sensory disability
3%
Nationwide statistics
Regional 1283
839
4124
1280
Complex referred requests Professional Expert Group
70
Consumer Reference Group
3
Support parent requests Number of families supported
225
Total number of support parents 245 National support parent requests
158
Local support parent requests
87
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| Parent to Parent Annual Report 2018
Support Parent request
1
Digital media Website page views
66,191
Magazine readership
230,000
Facebook likes* 8510 Twitter followers
895
LinkedIn connections
250
eNews database** 10,440 Podcast page views
1048
* Annual total from 1 national and 11 regional Facebook pages ** Annual total for national and regional Mailchimp databases
Events 2018
May 21-31 Kiwi Celebs Create for a Cause On Trade Me with art couriered courtesy of Fastway Couriers Waikato. Connected with an estimated 1.7 million people.
2019
March 3 SafeSquares At Bunnings stores throughout NZ.
July 21-31 Kiwi Celebs Create for a Cause On Trade Me.
October 20 Wheely Wild At Hampton Downs. Seeking sponsors.
Feedback
“
I have laminated the 10 practical
tips for classroom aids of autistic
children info. I refer to this often.
“
14
| Parent to Parent Annual Report 2018
Good to be able to relate with someone who has been through the same. ‘L’ was very supportive, helpful and practical.”
“
I love it, it is a great publication.
“
Thank you for your support and information. Sometimes life is very isolating and its comforting to read others understand and are in a similar position.We’re not alone (that’s a choice!)
“
It’s a great magazine to see in doctors offices and
other places, just to get the message out there that
“
our families look like any other (a chaotic mess!).
I had no idea this valuable service even existed and was delighted when I spoke to the lady on the phone. I’m telling the
other mums at school who have little ones struggling with some challenges about my very positive experiences with Parent to Parent. Thank you for all that you do!
“
“
I just wanted to say (rather late as we spoke a few
weeks ago) a huge thank you for connecting me with
the support parent. It was amazing to talk to someone who just got it – this journey with your child that’s
unique, scary, fabulous, full of joy and exhaustion. She was amazing. Your service is invaluable.
Parent to Parent have been a wonderful support network and resource for our family.
We have faced various challenges during our journey as the support behind T’s journey; each hurdle unique to each individual in our family. Parent to Parent has always been
there; sharing with us opportunities to help us grow during challenging times alongside her. The value of this support is immeasurable. We are a stronger, more loving and connected whanau because we have the support we need to support her in ways in which we would not otherwise have known and struggled to figure out ‘how’.
“
Great, it answered a lot of our questions and certainly gave us some good info on how to let both my son and his classmates,
and other people in general, about the new diagnosis. Also gave
“
us a good base of knowledge for what to expect.
The support was excellent and one day, when life calms down, I hope to be able to offer my services in return.
Parent to Parent Annual Report 2018 |
15
Supporters Parent to Parent New Zealand acknowledges the support of the following organisations that provided funding . . . . •
Achieving Change for Children
•
Hamilton City Council
•
Rehabilitation Welfare Trust
Charitable Trust
•
Healthcare Otago
•
Rotary Club of Invercargill
•
Acorn foundation - Dr Joan fund
•
Hutt Mana Trust
•
Rotorua District Council
•
Air Rescue Services
•
ILT Foundation
•
Sargood Bequest
•
Akarana Community Trust
•
Infinity Foundation
•
Scots Presbyterian Church
•
Auckland Airport 12 days of Xmas
•
J B Swan Dudding Trust
•
Sir John Logan Campbell
•
Auckland Council
•
Joe Aspell Trust
•
Sky City - Queenstown
•
Bay Trust
•
Kapiti Council
•
Sky City - Auckland Community Trust
•
Bendigo Valley Sports & Charitable
•
Kathleen Dorothy Kirkby Charitable
•
Southern Trust
Trust
•
Southern Victorian Charitable Trust
Foundation •
Blogg Charitable Trust
•
Kingston Sedgefield Charitable Trust
•
Star Buddy Charitable Trust
•
Blue Sky Community Trust
•
Lakeland Disability Trust
•
T G Macarthy Trust
•
Blue Waters Community
•
Legacy Trust
•
Te Pou
•
Calder Stewart
•
Len Reynolds Trust
•
Tauranga Energy Community Trust
•
Catholic Care now The Common Good
•
Life Unlimited
•
The Catholic Caring Foundation
Foundation
•
Lion Foundation
•
The Lion Foundation
•
Catholic Charities Palmerston North
•
Lotteries
•
The Tidd Foundation
•
Central Lakes Trust
•
Lou & Iris Fisher Charitable Trust
•
The Trust Community Charity
•
Christchurch City Council
•
L W Nelson Charitable Trust
•
The Trusts Community Foundation
•
Christchurch Earthquake Recovery Trust
•
Mainland Foundation
•
The Warehouse
•
Community Organisation Grants
•
Milverton Trust
•
Thomas G Macarthy Trust
Scheme (COGS) in 23 regions
•
Mt Wellington Foundation
•
Todd Foundation
•
Community Post
•
Nelson Bays Community Foundation
•
Trust House Foundation
•
Community Trust of Mid and South
•
Nelson City Council - Community
•
Trust Waikato
Canterbury, and Southland
Investment Fund
•
The Trust Community Foundation
•
Creative Tauranga
•
Network Tasman Charitable Trust
•
United Way
•
Dragon Community Trust
•
Nikau Foundation
•
W Duncan Bickley
•
Dunedin Casino Trust
•
Norah Howell
•
W & M Bear
•
Dunedin City Council
•
North and South Trust
•
Waikato WDFF Karamu Trust
•
D V Bryant Trust
•
Page Trust
•
WEL Energy
•
Eastern & Central Community Trust
•
Palmerston North City Council -
•
Wellington Children's Foundation
•
Estate of G L Isaacs
Community Services Council
•
Wellington City Council
•
Estate of Kathleen Alice Boyd
•
Pelorus Trust
•
Wellington Community Trust
•
First Sovereign Trust Limited
•
Perpetual Guardian
•
Whangarei District Council
•
Foundation North
•
Palmerston North Anglican Trust for
•
William Toomey
•
Four Winds Foundation
Children
•
Ministry of Social Development Youth
•
Fresh Choice
•
Polson Higgs - Dunedin Casino Trust
•
Frozen Funds
•
Pub Charity
•
Youth Town
•
Gallagher Trust
•
Rata - The Canterbury Community Trust
•
Z Energy Good In The Hood
•
Harcourts Foundation
•
Rotorua Energy Charitable Trust
•
Hawke's Bay Foundation
•
Redwood Trust
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| Parent to Parent Annual Report 2018
Fund
. . . . and the businesses and organisations who provided discounts and gifts in kind in the 2017/18 year. •
Annabelle White
•
NZME Christmas Party at Mystery Creek
•
Annex Group (NZPC)
•
Photographer Keith Maynard
•
Autism NZ Bowling Day
•
Platform Plus
•
Autism NZ 3 Lego Sets
•
Quiz night
•
Circus Quirkus Family event
•
Rainbow confectionary
•
Commodore Free Hotel Room
•
Razza Matazz
•
Complimentary Drink Sib Parent
•
Rhema Media
•
Daytona Raceway
•
Robertson Fulton
•
Discount Sib surf day
•
Room Hire
•
Fastway Couriers Waikato
•
Scorch Design
•
Foster Childres Pool Day
•
Southern Stars Charitable Trust
•
Framing House
•
Special Rigs for Special Kids
•
Funfest Charitable Trust
•
Splash Pool party
•
Going Bananas Family Event
•
Susie Trenwith: Parent
•
Hypercube
•
Te Kaha - Christmas party
•
IDFNZ / Kids Foundation AKL
•
Ten Pin Bowling Parties
•
In My Soap Pot
•
Timaru Train rides
•
Kids Day Out Variey Show
•
Trade Me
•
Kidzone
•
Vegeboys
•
Mage Air
•
Warehouse
•
Mailmonk
•
Whitakers
•
Megazone tickets
•
Wintec School of Media Arts
•
New World Brookfield
•
World Festival of Magic
•
NZ Care
Parent to Parent Annual Report 2018 |
17
Performance report
For the year ended 30 June 2018
Contents Non-Financial Information Entity Information 3 Approval of Financial Report
5
Financial Information: Statement of Service Performance
6
Statement of Financial Performance
7
Statement of Financial Position
8
Statement of Cash Flows
9
Statement of Accounting Policies
10
Notes to the Performance Report
12
18
| Parent to Parent Annual Report 2018
Page 3
Page 4
Page 5
Page 6
Page 7
Page 8
Page 9
Page 10
Page 12
Page 13
Empathy
Integrity
Values
Families supporting families
Aspiration
Parent to Parent New Zealand Inc PO Box 234 Hamilton 3204 0508 236 236 • national@parent2parent.org.nz www.parent2parent.org.nz