PHA Annual Report 2021

The Pulmonary Hypertension Association (PHA) welcomed 2021 with important milestones and new beginnings. The year marked the start of PHA’ s 30th anniversary, the launch of COVID-19 vaccines in the United States and new leadership We celebrate those milestones and other achievements in our first digital annual report.

The year began with a new CEO when Matt Granato joined PHA as its third president and CEO. One of his key priorities was to ensure patient care remains at the center of PHA’ s programs As the year progressed, the staff found new ways to promote his vision, leading to improvements in operations, patient services and culture.

A sense of hope existed as vaccines became available for the general public and COVID-19 testing became more accessible. However, new variants that spiked infection rates continued to affect PHA and the pulmonary hypertension community

Although PHA’ s Silver Spring headquarters remained closed, our team was as productive, if not more so, than before the pandemic We opened our jobs to people outside of the Washington, D C , area, building a culture based on the new reality

PHA is now truly a national organization with staff in many states and the District of Columbia working together to accomplish our mission We have new talent and a diversity of experiences that weren ’t possible before the pandemic That makes PHA stronger and more reflective of the communities we serve

Throughout 2021, PHA’ s main achievement was keeping the community together and informed despite ever-changing pandemic challenges We provided scientifically accurate resources, even as new information emerged.

This 30th anniversary gave PHA an opportunity to review what we have achieved and what lies ahead. While it was challenging to plan long-term in such a fluid and constantly changing situation, PHA history shows that we always get back up and move forward

As PHA entered a new decade, we continued to strive to extend and improve the lives of people affected by PH PHA staff, leadership, volunteers and members are critical to that mission. Our corporate partners and financial supporters have stuck with us, a testament to their commitment to our members and our mission

The PHA 2021 Annual Report highlights our accomplishments in our 30th anniversary year Those achievements reflect how we ’ ve adapted to life

Matt J. Granato, LL.M., MBA President & CEO

Tony Lahston Chair, PHA Board of Trustees

In 2021, the Pulmonary Hypertension Association marked its 30th anniversary by celebrating the vision of its four founders. Our anniversary campaign, “Lighting the Way Forward,” honored PHA’ s history while looking toward the future

We created an interactive timeline that detailed the shared history of PHA and the pulmonary hypertension (PH) community Users scrolled through “30 Milestones in 30 Years” to discover people and events that helped make PHA what it is today. We promoted the timeline by sharing a below

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At the time the Pulmonary HypertensionAssociation (PH hypertension (PH) were known. There was no hope, little

Looking Forward

On social media, we asked the PH community to participate in our "Share Your Vision" campaign We used the hashtag #PHA30 to mark our 30th anniversary posts We posted stories on our website of people with long ties to PHA, including people with PH and health care professionals Several patients were diagnosed in the 1980s and 1990s when limited resources and information about PH were available. We shared their accounts in the Pathlight magazine. That issue won a silver Trendy award from Association Trends, in recognition of outstanding communications and marketing by nonprofit organizations

Recognition for excellence

We launched our 30th anniversary celebrations in late 2020 at the end of our PH Awareness Month campaign, “disCOVER PH.” The campaign won a gold EXCEL awardfrom the Software & Information Industry Association AM&P Network The awards, announced in June 2021, are the largest, most prestigious recognition of excellence and leadership in association media, publishing, marketing and communications We also received a bronze award for our 2020 COVID-19 pandemic response.

The Pulmonary Hypertension Association raises awareness of pulmonary hypertension all year long. Throughout the year, we educate the public about symptoms, risks, diagnosis and treatment culminating in our annual PH Awareness Month campaign each November During PH Awareness Month and all year long, we raise awareness through our website, social media promotions, digital newsletters and print magazine. Raising PH awareness brings us closer to our mission to extend and improve the lives of those affected by PH

PH Awareness Month

In 2021, the PH Awareness Month theme was “Spark Awareness,” which complimented our “Lighting the Way Forward” anniversary campaign We brought back our award-winning awareness month calendar, which each day revealed an activity, fact or resource about PH to Spark Awareness.

PH Awareness Month 2021 focused on PH caused by left heart disease, the most common form of PH. We published a new free brochure, “PH & Left Heart Disease” and presented a webinar with Vineet Agrawal, M D , Ph.D , as part of our PHA Live series

7,000+ Clicks on PHAssociation.org

37,400+ Comments, likes and shares on four social media platforms

873,800 Social media impressions

200+ New social media followers in November

World PH Day

May 5 is World PH Day, an annual event to raise PH awareness throughout the world Because of the pandemic, World PH Day took place virtually for the second time in 2021 As part of our campaign, PHA encouraged the worldwide PH community to consider COVID-19 vaccines according to World Health Organization guidelines We also urged the community to follow health and safety guidelines , such as wearing face masks, practicing social distancing and washing hands frequently. Throughout May, we shared graphics about the signs, symptoms and risks of PH worldwide, with the hashtag #WorldPHDay2021.

333,836

Social media impressions (up 117% from 2020)

5,985

Social media engagements (up 18.9% from 2020)

2,240

World PHADay

PHAweb pages

Pulmonary Hypertension Association

PH Live

PHA Live is a webinar series on health, wellness, science and research topics Recordings of PHA Live events are available online after each event We promote and recap webinars in biweekly emails and on social media

4,980

PHALive webinar attendees

Rare and associated diseases

Throughout 2021, we shared social media content that raised conditions associated with PH, such as congenital heart disease, sleep apnea, sarcoidosis, lupus, HHT, scleroderma, pulmonary fibrosis and sickle cell disease We offer free brochures on 15 conditions through our PH & series

Pulmonary Hypertension Association Annual Report 2021 Page 17

Through our PHA Connects program, the Pulmonary Hypertension Association (PHA) provides education resources for people with pulmonary hypertension (PH) and their families To protect the health of the PH community during the pandemic, PHA offered only digital resources in 2021, including webinars, videos and downloadable brochures.

In early 2021, PHA published “Navigating Pulmonary Hypertension: A Guide for Newly Diagnosed Patients to the PH community.” The 60-page book addresses diagnosis, treatment, psychosocial issues and more In June 2022, PHA received a silver AM&P Network EXCEL Award for “Navigating Pulmonary Hypertension ”

1,258

Navigating PH downloads

1,110

Navigating PH books mailed

2021 webinars and videos

PH and Your Child

Over the Counter Medications and Side Effects Management

Understanding the PH Drug Pipeline

CTEPH: An Overview of the Disease and Treatments

What is the Risk of Developing PH if you have Connective Tissue Disease?

What is the Relationship Between PH and Connective Tissue Disease?

PH, Intimacy and Self-Image: A Woman's Journey

Visiting a Genetic Counselor

COVID 19 and Your Mental Health

Thanks to our work with leading PH health care professionals and scientists, our videos, webinars and education materials are medically vetted 16 PHAClassroom videos

14 Patient Education Clinic handouts (10 available in Spanish)

Pulmonary Hypertension Association

Thousands of people with pulmonary hypertension and caregivers receive support from peers and learn about their disease through Pulmonary Hypertension Association (PHA) support programs

Patient and caregiver support has been a priority since PHA’ s first support group meetings in 1991, and PHA made sure that support continued throughout the pandemic.

In 2021, PHA continued to prioritize remote support programs rather than in-person meetings In addition to virtual support group meetings, we offered our toll-free patient-to-patient help line, Email PHriends mentoring, telephone support groups, and Facebook groups

PHA added a Spanish-language group in 2021 to its monthly telephone support groups. Spanish-speaking patients can connect, ask questions and receive support Because the meetings take place by video call, patients can join from anywhere in the world

As part of our efforts to connect people who have PH and associated conditions, PHA worked with the Sjogren’ s community in 2021 to create a support group so people with PH and Sjogren’ s syndrome could share experiences and tips for living with both diseases. We presented interactive webinars about PH and Sjogren's and connective tissue disease.

In recognition of the stress many volunteers face in their personal lives, particularly during the pandemic, PHA enhanced support for volunteer leaders. We continued live Facebook check-ins with volunteers and scheduled quarterly virtual meetups so volunteers could socialize and network.

Also in 2021, PHA created a new training manual for virtual volunteers The manual helps volunteers understand their roles, how they can best support the PH community and how to manage meetings and difficult situations.

184 Support groups

2,692 Attendees

84 Telephone support groups

1,028 Support line calls

Pulmonary Hypertension Association

The Pulmonary Hypertension Association strengthened and expanded its grassroots advocate network in 2021 through monthly action alerts and virtual advocacy activities PHA members sent thousands of messages to Congress about proposed legislation to improve life for people with pulmonary hypertension

The messages called for insurance reforms, such as decreasing step-therapy requirements and ending copay accumulators. The PH community also urged Congress to increase National Institutes of Health funding and end barriers to specialized health care during the COIVD-19 pandemic. We also created an Advocacy Committee to strengthen PHA’ s grassroots advocate network The 10 members connect with new and existing advocates They also provide coaching for legislative visits and disseminate advocacy news The members include a diverse mix of five patients and five health care professionals who represent specific geographic regions.

Several Advocacy Committee members began their terms by participating in virtual legislative visits during the PH Professional Network Advocacy Day Committee members provided support to new advocates Many Advocacy Day attendees participated to advocate for their PH patients

Our 2021 victories included the enactment of a Connecticut law that prohibitscopay accumulators The law improves health care access for Connecticut residents with PH and other complex, costly health conditions. The victory is the result of many years of lobbying by PHA, including repeated testimony, calls and letters from 2020-21 Board of Trustees Chair Colleen Brunetti and other rare disease advocates

How Our Members Build Advocacy Power

The Pulmonary Hypertension Association’ s treatment access staff responded to nearly 100 inquiries in 2021 They provided personalized support for questions about financial assistance for copay costs, challenges in accessing oxygen, and the transition from employer-based insurance to Medicare.

PHA also reached out directly to patients about the availability of new financial assistance.

At year end, our 2021 open enrollment campaign provided information and resources to help people select and sign up for Medicare, insurance marketplaces and employer-based insurance

Throughout the year, we provided information and updates on our online insurance and treatment access guide The updates included news about charitable assistance funds opening and closing.

Several submissions to PHA's Specialty Pharmacy Feedback Form helped patients resolve billing and refill issues they previously struggled to resolve

Despite pandemic-related challenges, the Pulmonary Hypertension Association fulfilled its charge to keep health care professionals up to date. PHA offered online courses, its clinical review journal AdvancesinPulmonaryHypertension, on-demand education courses, and PHA’ s PH Professional Network (PHPN) Symposium

PHPN Symposium is an opportunity for PH-treating health care professionals to learn from each other and earn continuing education credits. In 2021, PHPN Symposium took place virtually for the first time. More than 450 people registered for the live Sept. 30-Oct. 3, 2021, event. Sessions remained accessible ondemand through December 2021 PHPN Symposium provided 26 5 accredited hours of continuing education

The theme was “PHiguring out the Puzzle: Pieces to Innovative, Patient-Centered Care ” The most popular sessions included:

• State of the Union in PH

• Advanced PH Hemodynamics

• Navigating Difficult Discussions in PH.

PHPN Symposium attendees

Abstracts at PHPN Symposium

Continuing education

PHA hosted a March 2021 webinar about accurate diagnosis and PH classification About 125 people participated to receive continuing education credit

Online University courses included “CTEPH Treatment Options: A Roundtable Discussion” presented by Matthew D. Bacchetta, M.D., M.B.A.; Ivan M Robbins, M D ; and Joseph G Salloum, M D ; and “Diagnosis, Assessment and Care of Children With PH” presented by Eric D Austin, M D , MSCI

AdvancesinPulmonaryHypertensionjournal informs physicians and non-physician clinicians about important trends affecting their practices It also analyzes new findings in peer-reviewed publications. Five issues were published in 2021:

• PH in the Time of COVID-19.

• Group 5 PH

• PAH as a Systemic Disease

• PH and ILD.

• Genetics and PH.

14,748 Advances in Pulmonary Hypertension subscribers

1,891 Continuing medical education certificates issued

1,506 Enrolled in Online University courses

26 New Online University courses

Despite the challenges of the pandemic, the Pulmonary Hypertension Association increased access to quality pulmonary hypertension care through the PHA-accredited PH Care Centers The PH Care Center network aims to increase access to specialized PH care; enhance health care provider and patient education; secure earlier diagnosis; and improve patient outcomes

In response to COVID-19 and limited in-person site visits at PH care centers, PHA adapted the accreditation review process a remote format. PHA retained all of its accredited care centers in 2021 and added one new center. The interest in accreditation remains strong, with 24 site visits and four new applications to join the PH Care Center network

PHA-Accredited PH Care Centers

60

Adult comprehensive care centers

14

Adult regional clinical programs

8 Pediatric centers of comprehensive care

Patient registry

Participation in the PHA Registry continues to grow from accredited care centers and their patients Five centers joined the registry in 2021, bringing the number of participating centers to 63. Ten sites enrolled their first patients in 2021.

75% Of PHCCs participate in PHAPatient Registry

1,884 Patients enrolled (up 463 from 2020)

Advancing PH research

Supporting PH research has been part of PHA’ s mission and strategic plan towards catalyzing research towards a cure PHA continues to support PH research through studies based on PHA Patient Registry data and research grants.

PHA also funds “Redefining Pulmonary Hypertension through Pulmonary Vascular Disease Phenomics” (PVDomics) with the National Heart, Lung and Blood Institute The study aims to identify biomarkers to improve PH diagnosis and treatment Forty-three writing committees analyzed data from the PVDomics study in 2021 and were drafting related research publications

Increased grant funding

PHA increased its research funding in 2021, creating three new awards to launch in 2022 They include:

• PHA Innovation Research Award.

• PHA Pediatric PH Research Award

• PH Mentored Scientist Award.

The final cycle of the PHA Aldrighetti Research Award for Young Investigators began accepting applications in 2021 Vineet Agrawal, M D , of Vanderbilt Medical Center, who was named at the end 2020, continued his research through the grant

A Quest to Reverse Lung Damage

Vineet Agrawal, M.D., Ph.D., didn’t plan a career in medicine. Growing up, he wanted to be an engineer and studied biomedical engineering at Duke University At Duke, he worked in a laboratory focused on medical devices There, he was inspired to pursue a medical degree and continue his research.

Dr Agrawal’ s path toward pulmonary hypertension (PH) was gradual It also was personal “I have a family member who suffers from pulmonary arterial hypertension (PAH) I get to see firsthand the effect that PAH has on the life of patients and families.”

Dr Agrawal seeks to understand how to reverse the destruction of lung vessels, one of the fundamental causes of PAH He and his colleagues have identified a new protein that could restore normal metabolism in PAH lung vessels. He hopes his findings th lt ti i l l d l d t

Pulmonary Hypertension Association

The Pulmonary Hypertension Association (PHA) had a record fundraising year in 2021 despite pandemic-related obstacles.

In November, PHA conducted its best Giving Tuesday ever A $30,000 match in honor of PHA’ s 30th anniversary helped drive unprecedented donations for the online fundraiser The match came from generous donors within the PH community who lost family members to PH and wanted to help prevent similar losses.

The total raised for Giving Tuesday 2021 surpassed $121,000, more than 20% higher than the previous year. Those donations, along with endowments, corporate support, company matches and foundation gifts, funded PHA programs at a critical time

PHA’ s monthly giving club, the Sustainers Circle, also saw a large boost in 2021 Doug Taylor, a member of PHA’ s Board of Trustees with PH, led the charge to increase monthly contributions through our Summer Step-Up Campaign.

Other donors also shared their inspirational stories to encourage people to give what they could, resulting in some of the highest performing fundraising campaigns in PHA’ s history

Drive-By Lemonade Stand

Raises Money for PH Research

Pulmonary Hypertension Association

Baseball Player Helps Strike Out PH

Pulmonary HypertensionAssociation Pulmonary HypertensionAssociation about 2 years ago about 2 years ago

Pulmonary HypertensionAssociation Pulmonary HypertensionAssociation about 2 years ago about 2 years ago

Raising Awareness and Support for Rare Disease Research

Pulmonary HypertensionAssociation Pulmonary HypertensionAssociation about 2 years ago about 2 years ago

This is Ellie. For her seventh birthday, Ellie wanted to drive-by and virtual lemonade stand. Ellie, who has id more than $7,800, and donations are still coming in. involved. http://ow.ly/vVDe50FV0ME

Tyler Garigen was 4 years old when he was diagnose family in making a donation for PHA’s 30th anniversa support people likeTyler. Donate now. http://ow.ly/VZ

Georgette and Dean Bridger’s love and devotion to e including Dean’s scleroderma and pulmonary arterial Dean have hope for a cure for PH. Join PHA’s 30th a http://ow.ly/nFEt50GvAZ0

Engaging the community

During our 30th anniversary year, PHA ran fundraising campaigns that featured three people with PH and a caregiver. The campaigns resulted in some of the highest performing fundraising efforts in PHA’ s history, especially the spring campaign featuring Monica Penaranda, which brought in more than $28,000. That campaign alone raised more than twice the spring campaign of 2020.

Fundraising events

PHA fundraising events raised more than $200,000 in 2021 The majority of the fundraisers were PHA O2breathe walks conducted virtually Participants raised money through an online platform before the celebratory interactive events Each virtual event featured participant photos, individual and team fundraising recognition and prize drawings. They also highlighted information about pulmonary hypertension, the 30th anniversary celebration and PHA programs that depend on fundraising

The grassroots event that raised the most money ($60,000) was a golf tournament organized by PHA board member Matt Wall and his wife Jayna, whose son Jackson has idiopathic pulmonary arterial hypertension.

The virtual event that raised the most money was the Southern California O2breathe Walk. The event raised about $22,000.

2021 Donors

$100,000+

Estate of James Ryan

Barbara Lee Smith Trust

$25,000-$99,999

The Louis J and June E. Kay Foundation

Janethe Pena

$10,000-$24,999

Aya and Randolph Clark

Julie and John Danstrom

Estate of Terri Jakuboski

James Kenney

Estate of Frank D. Koppelman

Harkisan Laheri, M.D.

Mark Lapidus

Michel Lentz

Robert Olson

Stewart and Forrest Priddy

Nicholas Sakamoto

S&S Electric

Wasatch Global Investors

James Collins

Douglas Collins

Donald Connell

Margery A Corristan

The Crystal Council

Victor M. Dillingham

Miss Kylie Donahue

Doreen Duffy

Gary Dukart, M D

Durham Foundation

David Tolchin and Shira E. Epstein

John R Etzkorn

Eric D Falk

Joseph E Farrell

Sara Fields

Daniil Finkel

Andrew J Fisher

H Fort Flowers Foundation

Hospital Corporation of AmericaThe Honorable Barbara T Gamer

Christine Garcia

Trevor Gardner

Henry R Gentsch

Summer and Jason GibsonDean W Goldbeck

Google

Pulmonary Hypertension Association

$5,000-$9,999

Gary S Atkinson

BP America

Jason Browne

DPR Construction

Martha N. Hill, Ph.D.

JLB Corporatio

Loral B Kirke

Joseph A Kruger

Shale Lapping

Betty Locke

Jefferey Lurner

Alex Melconian

Kimberlee Miller

Estate of Theresa O'Reilly

Philip E. Paroian

Jan and Eric Skuldt

The Swoff Family

Thomas Jefferson University

Warco Construction

The Charles & Marion Weber Foundation

Stephen L. White, Ph.D.

Wendy Griggs

Macquarie Group

Hall Family Trust

Malcolm A Head Jr

Mitchell Henderson

LaVerne D. Henderson

Dr. and Lawrence R. Hennessey

Mary Sue D Hines

Matthew Howsare

Asako U. Igawa

James Jelinek

Michal and Daniel Katcher

Maureen Kelly

James and Rinchen-Tzo Klinger

Kevin Kondry

Mitchell and Debbie Koppelman

Jay A. Kossman

Learman Family Donor Advised Endowment Fund

Kay and Pat Lindsay

Michael A Locricchio

Peter B. Lodewick

Jon Magnuson

Sandra Matteucci

Jack McHale

$2,500-$4,999

Robert Betz

Richard K Calverley

The McNiff Family

Barbara Carson

The Civil Group

Thomas E Clauss

Code Electri

David Coppins

Marsha Corey

Don Brown Chevrolet

Ramona Doyle and Amy Kindrick

Carol A Edwards

Ellie Mae Fund

Josh Estes

Nicole Farmer

Mary A Felkel

Barry Garigen

Sheri and Richard Guider

Gloria and Wayne Hamm

Hillsborough Plumbing Company

Floyd McCabe

Ronald and Nancy McFarlane

Microsoft Elizabeth Miklos

Jack Nino

John Nooncaster

Donald Porter

Prashant Raval

Real Estate One Charitable Foundation

Melinda L Rummel

Pulmonary Hypertension Association

Michael Bonar Memorial Fund

Richard A Michalski and Anne Frates

Chad Molen

Mott Charitable Trust

Alice Muson-Wood

Chetan Naik, M.D.

Alan G. Ng

Mary Novak-McCafferty

Gary and Vicki Olson

Order Sons of Italy in America Lodge #2422

Rosanne H. Osmanski

Richard Peacy

Monica Penaranda

Penn Presbyterian Medical Center

James Peterson

Physicians World

Andy G. Pinson

John and Sally Pletcher

John W Poduska

Chris A Pulliam

Anthony Ratti

Philip Reeves

Mae Reynolds

Mary B Rogers

Lauren Roser

Kevin Ryan

Robert D Sayer

$1,000-$2,499

Andersen Family Foundation

Rino Aldrighetti

AstraZeneca Pharmaceuticals

Atventure Retail Group

Mohamad Ammar Ayass

Christina A. Back

David B Badesch, M D , FACP

W Murrie Bates Jr

Neuberger Berman

Ethalinda Blackman

Esperanza Fe Borg

Katherine Bouton

Martin Bowin

Arthur J Broadhurst

Bruce E. Bushlow

Karen S. Briggs, D.O.

Braden Buehler and Benjamin Mini

Mary Byrd

Jacinta Calverley

Azalea Candelaria

Frank H. Cann

Lura Carraway

Tom Carstens

Murali M Chakinala, M D

Tony Chroussis

Pulmonary Hypertension Association

Trevor Schneider

Robert P Schneider

Laura R Seyfarth

Deborah Shelton

Barbara A Shepsko

Victoria A. Shivel

Susan Silbermann

Nicholas Simons

Rebecca and James Smirk

Cecilia M. Smith, D.O.

Antoinette Sperando

Hari Srinivasan

Margaret N Strand

Tom Swenson

Synopsys

Nina Temple

Susan Uremovich

Lynne M Vandenakker

Al and Kristi Vculek

Charlene Vener

Patricia and Jim Wasserman

Rick and Char Weaver

Sheila E Weaver, D O

Westfield Insurance Foundation

Aubrey R Whitfield

Annette C. Wild

Mike Willis

Corporate Partners

Our corporate partners recognize PHA as a leader in the PH community These companies make a difference year-round through their generous corporate giving, volunteerism and fundraising.

They know that a strong PHA means a vibrant and empowered PH community We thank them for their commitment and recognize them here, based on their funding support

Janssen Pharmaceuticals

United Therapeutics

Bayer

CVS Specialty

Accredo

Acceleron Pharma

Insmed

AllianceRx Walgreens Prime

Altavant Sciences

Gossamer Bio

Aerovate

Liquidia

Bellerophon Therapeutics

Phasebio

Respira Therapeutics

Shields Health Solutions

Springer India

PHA is governed by a diverse group of dedicated and passionate volunteers who have all been touched by pulmonary hypertension. Our Board of Trustees is made up of people with PH, family members and medical professionals specializing in the disease who serve without compensation

Officers

Tony Lahnston Chair

Bereaved Family Member Banker and Manufacturing Executive Windemere, Florida

Traci Stewart, R.N., MSN, CHFN Chair-Elect

PH Nurse Coordinator, Heart and Vascular Center, University of Iowa

Matt Wall Treasurer

Parent of Child with PH, PH Advocate Commercial Construction Manager Burlington, North Carolina

Nicole M. Creech Secretary

PH Patient, Support Group Leader and Patient Advocate

Lexington, Kentucky

Members At-Large

Colleen Brunetti, M.Ed., C.H.C.

Immediate Past Chair

Owner, ColleenBrunetti com

West Hartford, Connecticut

Colleen Connor

PH Patient

West Chester, Pennsylvania

Ramona Doyle, M.D.

Clinical Professor of Medicine

Pulmonary Hypertension Clinic, UCSF

San Francisco, California

Anna Ryan Hemnes, M.D.

Scientific Leadership Council Chair

Associate Professor of Medicine

Vanderbilt University

Nashville, Tennessee

Kimberly Jackson

PH Professional Network Chair

Registered Nurse Coordinator

Pulmonary Hypertension Clinic

University of Kentucky, Lexington

Monica Penaranda Patient, PH Advocate

Hacienda Heights, California

Michelle Liu, M.D., M.P.H., FAAOA

Parent of Child with PH

Deputy for the Quality Directorate

Walter Reed Military Medical Center

Bethesda, Maryland

Diane Ramirez PH Patient, PH Advocate, Support Group Leader

Lexington, North Carolina

Mitchell Koppelman, Ph.D.

Retired VP Strategic Planning

Minerals Technologies Inc.

Principal Consultant, Mineral Solutions & Strategy

Doug Taylor Support Group Leader, PH Patient/Patient Advocate, and Retired Architect

Lexington, South Carolina

Jessie Kohler Wenninger, Esq. Attorney

Panish Shea & Boyle LLP

Santa Monica, California

Delphine Yung, M.D.

Pulmonary Hypertension Care Centers Board of Trustees Chair

Associate Professor, Seattle Children’ s Hospital

Ex-Officio

Matt J. Granato

LL.M., MBA

President & CEO, Pulmonary Hypertension Association

Silver Spring, Maryland

Members Emeriti

Immediate past chair, Department of Medicine, Intermountain Medical Center

Chair, Graduate Medical Education Committee, Intermountain Healthcare

Professor of Medicine, University of Utah School of Medicine

Murray, Utah

Ed Simpson, D.Ed.

Professor Emeritus, College of Education at Northern Illinois University

Holiday Island, Arkansas

Michael McGoon, M.D.

Professor of Medicine (Emeritus), Mayo Clinic

Rochester, Minnesota

Judith Simpson, RN, EdS

Pediatric nursing instructor (retired)

PHA co-founder

Holiday Island, Arkansas

C. Gregory Elliott, M.D.

Ex-Officio

Carl Hicks

Former PHA Board Member (2002-2012) and Board Chair (2008-2010)

PULMONARY HYPERTENSION ASSOCIATION INC.

*These2021chartsarebasedonpreliminarilyauditedfinancials Auditedfinancialsareusuallyavailablebythefourthquarteroftheyear Oncecomplete, auditedfinancial statementsareavailabletoreviewatPHAssociationorg/accountability