A Publication of Tri-Counties Regional Center | Winter 2015
R is for Respect Cover Story 01 R is for Respect Featured Articles 02 From the Executive Director 02 PathPoint Celebrates their 50th Anniversary 03 All Over the Map 05 Cathy Farrar Spoke Out for People with Disabilities 06 Emergencies with Autism 08 Calendar of Events 14 A Place of One’s Own 15 The Arc of Ventura County Celebrates 60th Anniversary 16 Greetings from the President
The Arc of Ventura County / People First Language Project R: Rethink, Reconsider, Respect
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Project R letter writing campaign team
Visio n:
Persons with developmental disabilities live fully and safely as active and independent members of their community.
Mission: TCRC provides person and family centered planning, services and supports for individuals with developmental disabilities to maximize opportunities and choices for living, working, learning and recreating in the community.
In 2012, The Arc of Ventura County launched Project R: Rethink, Reconsider, Respect – a self-advocacy campaign aimed at eliminating the use of the ‘R-word’ in every day vocabulary, as well as all hate speech targeted at people with intellectual and developmental disabilities. Project R is led by self-advocates who visit high schools throughout Ventura County to share their personal stories of how the use of the R-word has affected their lives. Project R supports the importance of People First Language and empowers participants to be respected and recognized as individuals with qualities and abilities who offer value and significance to their community. continued on page 4 Santa Barbara | Ventura |
San Luis Obispo |
www.tri-counties.org
From the Executive Director by Omar Noorzad, Ph.D. The fall is an important time to consider accomplishments of the rapidly closing year as we look forward to the coming year. The year of 2014 has its stories of success, hard work and most importantly, continuing efforts to provide quality supports and services to persons served by Tri-Counties Regional Center.
with developmental disabilities.
We at TCRC, leadership and staff, realize our responsibility to ensure that persons who are receiving services have the best opportunity for a quality life, the basis for our mission. Our efforts toward this end continue daily, with both challenges and rewards.
• Plans to support more individuals with high behavioral challenges through shortterm crisis and residential services. • Funding for staffing to transition individuals from Developmental Centers to the community through the Community State Staff Program as well as for the regional centers through transition services, resource development and quality assurance. • Restoration of Early Start services eligibility criteria comparable to before the 2009 budget reductions. • The Department of Developmental Services’ (DDS) task to conduct a study of regional centers’ Operations and Purchase of Services budget to evaluate the costbased reimbursement system and report recommendations to the legislature by early 2015. • Removal of prohibition for regional centers to pay deductibles for behavioral services. • Support for service providers who will be paying overtime as well as potentially increased wages as a result of changes in federal overtime requirements (for In-Home Supportive Services Supported Living, In-Home Respite, and Personal Attendant Services) and for the state minimum wage
The article in this TriLine about Project R reminds us that people with developmental disabilities need our attention around their emotional lives as well as their physical wellbeing. Read about the efforts to remove the stigma and slang word use around intellectual impairment – and “take the pledge!” The story of a young man named Chad poignantly describes the journey of an optimistic and persevering individual who received excellent support from TCRC staff and a service provider. The story is a snapshot of what goes on every day in the work of TCRC staff and service providers. Keeping people safe physically can also be a difficult task. Read about how training for first responders provides important information and insights for those who respond to emergencies involving people
The financial resources to do our work are so important. The 2014/2015 budget for California provides for restoration of some funding, support to continue to move people to the community and for future planning for our Purchase of Services and Operations budgets. Some important issues include:
We look ahead to 2015 as changes in legislation impact the regional center system. DDS will apply for federal funding to support an increased focus on Self-Determination services, as a result of Senate Bill 468, by the end of 2014. Assembly Bill 1041 Employment First Trailer Bill Language mandates that more data be available about current employment of people with developmental disabilities as well as the development of an Employment First Committee, among other activities, to advance employment opportunities. Trailer Bill Language for Assembly Bill 86 will result in development of regional plans state-wide through seventy Community College and School District consortia with recommendations for enhanced adult education, including programming for adults with disabilities. These and other legislative actions are creating changes for our system and processes that can improve lives for people with developmental disabilities. I am so pleased that this season has included two celebrations of longevity of excellent service from The Arc of Ventura County and PathPoint. As we celebrate the contribution by these agencies this year, we at TCRC also remember the life of Cathy Farrar, former TCADD Board member. An advocate and a friend, Cathy will be missed. Please join me in a positive, person centered approach for 2015 as we continue our work and manage the opportunities for enhancement of service in the best way possible.
PathPoint Celebrates their 50th Anniversary Way back in 1964, Work Training Programs, now known as PathPoint, began offering services in Santa Barbara. To commemorate the years of service, several regional events were held. A 50th anniversary party was held in October at the La Cumbre Country Club to celebrate the work of both the South Santa Barbara Division (in support of adults with intellectual & developmental disabilities), and the Behavioral Health Division (in support of individuals with 2 | TriLine | Winter 2015
mental health diagnoses and substance use issues). Honorees included Mayor Helene Schneider and the McDonald Family. Events were held at the San Luis Obispo Botanical Garden and the Santa Maria Country Club. A 50th gala was also held at the Grammy Museum in Los Angeles for PathPoint participants, employees, donors, and others. Sonnet Simmons from ABC’s Rising Star performed and celebrity guests included actor and producer, Jacqueline
Cereceres.“ This is a special event for us as we celebrate our 50 years of service, but what’s truly amazing is that we’re able to honor and celebrate the thousands of people who have helped us over the past 50 years,” says CEO Cindy Burton. PathPoint is a non-profit organization focused on assisting people with disabilities or disadvantages to live and work as valued community members.
All Over the Map
by Heather Wennergren, Media Coordinator A featured artist in Santa Barbara author Debra Hosseini’s popular book, The Art of Autism, Jason Cantu, 28, had his first solo art show at TCRC’s office in San Luis Obispo. The show, All Over the Map, hung during the first quarter of 2014. This was the inaugural art show at the San Luis Obispo office, launching a new effort to showcase the artistic talents of people receiving services. Jason dedicated his show to Marianne Culver, TCRC Service Coordinator, in gratitude for helping him to plan his services, “and doing it with love and care.” “In my early years, I always liked to draw maps, and drew on old maps, making new freeways, all the different interchanges, on-ramps and off ramps… it really intrigued me,” Jason recalled. When asked about the bird images of his work (“The Raven” and “Night Bird”) in the show, and whether they were a recurring theme, he responded, “What I most like to draw are maps. That’s what I was first interested in, growing up. I like to travel and get populations of towns. I have a very good memory. For example, the population of Fresno was 461,000 when I last went there.”
Jason’s Drawing, “A Bunch of Freeways”
Jason uses a variety of mediums, including digital, in which he draws the maps and then scans them, adding color on the computer. Jason’s mother, Shawn Bostrom, said that Jason became interested in maps and populations as a broadening of his interest in trains, and that he was excited to go on vacations so he could record the population of each town they visited. “He can still recite the
population of just about any town,” she said. “The experience was amazing,” he recounted, after the art show. “My upcoming plans are to have a show at Seven Sisters Gallery for Autism Awareness Month. It’s great that I’m getting recognized, and that people are appreciating my art. I hope that my next art show will be as successful as this one was.”
This Winter we celebrate with our partners - - PathPoint for 50 years of service (page 2) along with The Arc of Ventura County for 60 years (page 15), while joining our friends to “Spread the word to end the word” (pg 1).
“I’m also keeping my eye out for open positions in broadcasting. I like to DJ, too. What I’m really into is acting, like the movies I do with Adventure Club. Our films are diverse. We’ve made fantasy movies, a cross of crime drama, B-movie and horror… and our most recent was a comedy romance. We all participate in the creative process together.” Jason appeared in the film Tommy Benjamin, produced by the Adventure Club (a TCRC service provider), and screened in the Palm Theatre in San Luis Obispo on January 25, 2014. Jason holds a degree in Broadcast Communications from Cuesta College where he also took art classes from instructor Marian Loomis, an early supporter who encouraged him to show his work. “He never ceases to amaze me,” beamed Jason’s mother. “He’s uber-smart, and so authentic. He would never be disingenuous. He’s such a good person, and I’m so proud of him. Authentic and autism seem to go together. One time I told him, ‘Jason, if someone had a cure, I wouldn’t want you to have it.’ He said, ‘I feel the same’. Jason’s had so many angels. It’s been wonderful, once we really knew and admitted it (his diagnosis). It’s been quite miraculous.” Collect a piece to further appreciate Jason Cantu’s unique view on interconnection. To learn more about Jason’s work, email laffer3456@yahoo.com with “Jason’s art” in the subject line. Some of Jason’s drawings are also available at theSeven Sisters Gallery (sevensistersgalleryca.com). Click on the “paintings” tab.
Jason’s Drawing, “Zeus”
Jason’s Drawing, “Protective Angel”
Winter 2015 | TriLine | 3
R is for Respect
(Continued from page 1)
by Heather Wennergren, Media Coordinator “It’s been a whirlwind of presenting to schools,” stated Phillip Powers, Project R Coordinator. “We do our best to present in a way that students see that we’re just people. People with disabilities are people too. We don’t need special treatment - get to know me for me.” Project R representatives ask students to “be the change they want to see in the world” and to sign a pledge to not only eliminate the use of the R-word from their vocabulary, but to encourage others to do the same. “This last school year, we received over 4,000 signed pledges,” Powers proudly stated. “Being involved isn’t just a matter of volunteering; it’s a matter of thinking about people as the person they are. That sounds deceptively simple, but that’s all there is.” “When Project R was established two years ago with a grant from the McCune Foundation,” Powers continued, “our goal was to empower those we serve to be the leaders of the project; moving the initiative forward by people with disabilities, not for them. We spoke with Larry Ingall, and asked, ‘How do you feel about the R-word?’ He said, ‘I don’t care if that word is used against me, but I don’t want it used against my friends.’” Larry had just started attending our Community Integration Program in Ventura, and was making new friends. I said, ‘Larry, you have to be a speaker!’ We now joke that he became famous, as students have begun to ask for him by name, ‘Where’s Larry?’ He kind of found himself through Project R. Now Larry has friends at local schools who are looking out to make sure
Larry, Angela and Mike get ready to speak to students
4 | TriLine | Winter 2015
Angela sharing her poetry
that this word isn’t used against him.” The Project R initiative has support through federal action along with the local efforts. In October 2010, President Obama signed “Rosa’s Law,” which supports the removal of the references “mental retardation” and “mentally retarded” from federal government policy documents. The term “intellectual disability” has now replaced many of these outdated terms.
Larry takes a break in a classroom
“We started with the mission to eliminate that word in regular speech. President Obama eliminated that word in medical and legal speech. Most businesses have removed the word. It’s not in the media so much now. It gets dubbed over in old movies and TV. We modeled Project R after the civil rights movement; about peace, love and trying to understand. We’re treating those who continue to use that word as ‘uninformed’. People with disabilities are here to stay, and part of the society we live
in. We’re not asking for anything special; we just want to see that everyone gets a fair chance. We want people to be seen as who they are.” “Kids ask us, ‘Well if I don’t use the R-word, then what do I use?’ We usually respond, “How about the person’s name?” “The R-word is dying out in the English language, and that’s something wonderful. The focus has shifted from eliminating the R-word to giving participants the chance to get out and share their stories. In doing that, they find acceptance with their families and friends and community. In sharing it, people see ‘that wasn’t okay; I’m sorry that happened to you.’ I’m seeing participants really come out of their shells. Angela Jenkins was too shy to speak publicly, and now she writes poetry and reads it at ‘open mic’ events. Project R empowered her to express herself freely. It’s not even about poetry, but realizing that people can be anything they want to be.”
Armbands help spread the word
“We started in Ventura County and are expanding greatly. Our target audience is ninth graders and we’ve been invited back by every single school for additional presentations. Our plan is to speak to the entire school body, eventually. We feel that this path is the way to bring about this change naturally. We encourage the students to take an active stand. If you hear someone use that word, you could say, ‘That’s not socially acceptable anymore, there was a law passed in 2010 to remove that word.’ We can weed it out of our own speech. It’s hurtful. It’s not okay anymore.
We want the students to realize that this is a chance for them to be part of a social rights movement. The R-word is on its way out. At the end of the day, you‘ll either say ‘I was a part of it’, or ‘I watched it happen’. Students can educate their parents. Even with something as simple as choosing what to say.” For more information or to schedule a Project R presentation, contact Phillip Powers at (805) 652-0541, Ext. 132 or ppowers@ arcvc.org. You can find Project R on YouTube or follow them on Facebook.
Another Organization Supporting this Work Visit www.R-word.org to find a kit to run a pledge drive at your own school, schedule a presentation, or pledge “Spread the Word to End the Word”: “I pledge and support the elimination of the derogatory use of the R-word from everyday speech and promote the acceptance and inclusion of people with intellectual disabilities.”
Cathy Farrar Spoke Out for People with Disabilities
by Cathy Berry, Executive Assistant and Heather Wennergren, Media Coordinator State-level Advocate and Beloved Friend Remembered Friends gathered on Friday, September 4th, 2014, to remember the life of Cathy Farrar, a person served by TCRC, and a former TCADD Board member. A plaque was placed beneath a tree outside the TCRC Annex in Santa Barbara, commemorating Cathy Farrar’s life of friendship and service. Those in attendance included Cathy’s family, friends and neighbors from Lompoc, TCADD Board members, TCRC staff and others. Cathy Farrar served as a TCADD Board member, participated in the Leadership Project, and graduated from the Partners in Policymaking program. She also testified before the legislature on several occasions. Cathy attended many advocacy conferences and events. Stephen Day described Cathy as a “tireless advocate.” She used her energy and experience to voice her concerns for the 216,000 children and adults in California who have developmental disabilities. Her word carried a strong message, and those she served were well represented. Omar Noorzad, TCRC Executive Director, remembered Cathy as “a great advocate and an inspiration to many.” He added, on a more personal note, “She was also my friend, and I’m going to miss my friend.” Others chimed in as well: “Cathy was the best friend I ever had” said lifelong friend
Memorial plaque
PAC member, Donna Moore, shared with those present, “If you take a little memory and put it in your heart, it will stay there forever.” Cathy Farrar
Vera Hughes. Vera misses Cathy’s daily check-in call, a simple “I’m home,” answered by “I’m home too.”
Vera can no longer pick up the phone to hear Cathy’s familiar voice, but Cathy’s memory lives on in the hearts of her friends and colleagues.
Cathy had a great sense of humor, and wasn’t afraid to use it. Those in attendance remembered funny moments they shared with Cathy. The event included laughter and tears. Charles Devlin, owner of R&D Transportation Services and TCRC service provider, had the pleasure of serving on the TCADD Board with Cathy. Charles added, “she always reminded me about our real focus - - the people we serve getting what they need. Cathy reminded me of the importance of what we’re doing here.” Cathy Farrar worked to improve the lives of people with developmental disabilities. She made an impact, both on a personal level and through her advocacy.
Vera Hughes places a rose at the dedicated tree
Winter 2015 | TriLine | 5
Emergencies with Autism
Santa Barbara’s first responders get special training by Heather Wennergren, Media Coordinator “Responding to an urgent call for Stephen and others with sensory challenges requires an understanding of difficulties with sensory stimuli and how individuals manage this stress. Stephen speaks in a monotone and may not show a reaction to pain. It’s important for responders to take additional steps to ensure safety for people who may have painful reactions to light and sound, but don’t show it. During a triage check, even if a person does not appear to be in distress or in pain, precautions need to be taken. A visit to the Emergency Room might be indicated, even if a person is not presenting with a reaction to pain.”
First responders learn about ASD
People with autism and their families received a special gift from the Autism Society of Santa Barbara this year. The group brought specialized training to the area. Fire, Police, Sheriffs, Rescue and Emergency Medical Service professionals received training on caring for people with Autism Spectrum Disorders (ASD). Bill Cannata, Program Director of the Autism and Law Enforcement Education Coalition (www.arcsouthnorfolk.org), arrived from Westwood, Massachusetts to educate local providers. As a retired Fire Captain in Massachusetts and father of a son with autism, Bill Cannata truly recognizes the importance of this training for emergency service providBill Cannata ers. Mr. Cannata explained, “They need to understand the special issues and circumstances faced by people on the spectrum.” His goal is that first responder interactions with this group are both informed and safe. Marcia Eichelberger, President of the Autism Society of Santa Barbara, worked diligently to bring Bill to Santa Barbara. She 6 | TriLine | Winter 2015
co-hosted a series of 6 trainings with support from Board members Sandra Shove, Vice President and Cathy Abarca, Event Coordinator. “Field interactions with people who have autism can challenge your instincts,” Bill Cannata told the assembled crew of firefighters and law enforcement professionals. “When you’re responding to a fire, an accident or a missing person call, and there’s a person with autism involved, understanding their specific situation can maximize safety. People with ASD [Autism Spectrum Disorder] may regress and completely shut down under stress. There may be no response at all. Understanding methods to communicate in this circumstance is critical to a safe outcome.” “Here’s an example of a situation that requires understanding,” he continued. “My friend Stephen has Asperger’s. Although Stephen was non-verbal until age four, he’s now a college professor with a PhD, and participates in the Autism Task Force. Stephen lives with unique challenges in his response to his environment. When he is indoors, downward, reflective lighting causes a painful, ‘white out’ experience. High frequency sounds irritate him. Stephen has learned to use certain coping skills; he wears a baseball hat indoors to deal with lighting.”
Bill went on, “If you can’t examine the person on site, just document this in your report. Transport the person and do it in the ER. A person with ASD may be selfinjurious. When transporting, make sure that the airway is clear, place the person on a stretcher, with blankets, and no C-spines (confinement of the person to the stretcher). This is actually against protocol, so it’s important to document this in your report. Protocol about restraints during transport needs to be changed when managing a case for a person with autism.” “In the Emergency Room, when a person with autism arrives, it’s best to move into a quiet room as soon as possible. The sensory stimulation is intense in this environment with the lights, instruments, and beeping machines. Move the person out of the triage area to a quiet room with only the necessary lights for assessment.” Bill advised the assembled firefighters to minimize stimuli like sirens and lights when responding to a call. He knows first hand that extra time may be needed to allow certain behaviors to de-escalate. He suggested delaying restraint methods when possible. Additionally, residences for people with autism are often adapted. If necessary, responders may need to use forced entry if a residence has both exterior and interior locked doors. Some homes may have bars on the windows to prevent elopement and Plexiglas or Lexan replacement for glass. Bill warned,
“It’s important to be cautious with glass enclosures, as a person may be attracted to breaking glass. In an emergency situation, a person with autism may hide in fear, even from assistance. Responders must fully search the premises.” “People with autism may respond with resistance or aggression,” he stated. “If time is of the essence, take measures to secure their safety. Methods like wrapping to drag and release can be effective. And consider that a person may even try to re-enter a burning building.”
the person, explain step by step what will happen. Put it in story form.” In addition to talking about responses to homes, Mr. Cannata described responding to car crashes. He mentioned the autism alert decal (‘Occupant with Autism’ with a puzzle-piece ribbon logo). This sticker can be placed on car windows to let the responding team know that they may need to take additional precautions.
The Massachusetts fire department dispatches an extra vehicle and support when a person with autism is involved.
His advice is similar to that of a response to a residence. He emphasized, “Make special considerations. Use a calm approach, and short, specific phrases. If a person doesn’t respond to a complicated request, use short phrases, such as ‘please sit’, ‘get in’, ‘wait here’, and ‘stop’.” Bill mentioned that some people use sign language or have communication picture cards. Others may use written language with a tablet or an electronic device to type or text. Taking time to communicate is important, verbal or non-verbal, and allowing extra time for responses.
“People with autism may frequently call 911,” Bill continued. “When parents call, be sure to get basic facts about how responders should communicate with the person who has autism. Special routines may need to be considered. Work with caregivers, and limit the number of people involved, if possible. A parent or caregiver can assist with questions. If you have to leave with
When interacting with people with autism, Mr. Cannata summarized, “It’s important to allow time for the person to react, to determine the best method for communication and find the best approach. The time invested in the call will benefit the person as well as the responders. Including family or those involved in the care is important.” Bill cited an instance in which
“A person with autism may understand certain rules about their home, and may not be willing to go out a window, even if the building’s on fire. The person may also be frightened by the gear that we use, or attracted by shiny objects like your badge.”
Jim McCoy, Marcia Eichelberger, Sandra Shove, Bill Cannata
a young person wouldn’t leave a crash site without his parent. The Autism Society is working with educators to prepare children and their families for emergency situations. There are biographical forms available to alert emergency providers about a person with ASD. These packets include a photo, medication list, likes and dislikes, contact info for caregivers, and tips on how best to communicate for the special needs of the person. Some people or their families have In Case of Emergency (ICE) ID cards, medic alerts, jewelry, clothing or shoe tags, and even washable tattoos with information. A phone app is also available with biographical and contact info. “On occasion, some persons have radio-transmitter tracking devices,” Bill adds. “In those cases we can find them within thirty minutes.” Mr. Cannata also mentioned a program called Community Days that provides tours for people with autism. This helps people get acquainted with their emergency service providers and increases familiarity. To find out more about this program, contact the Autism Society of Santa Barbara through their website www.asasb.org. Thanks to the Autism Society of Santa Barbara and Bill Cannata of the Autism and Law Enforcement Coalition for efforts to ensure the protection and safety of people with special needs living in our community.
Learning when to change protocol
Winter 2015 | TriLine | 7
SANTA BARBARA COUNTY
Events
Santa Barbara County
ALPHA RESOURCE CENTER FAMILY RESOURCE CENTER email: info@alphasb.org / www. alphasb.org
CITY OF SB PARKS & RECREATION DEPT Check out what they have to offer. Contact: Adapted Programs 805.564.5421.
Santa Maria Office Santa Barbara Office 805.347.2775 877.414.6227 805.683.2145 Alpha Resource Center offers a wide variety of services and supports to encompass the needs of individuals with disabilities of all ages and at all stages of life. Alpha Children & Family Services ~ Assists parents of children with special needs to gain the knowledge and skills to enable their children to be all they can be. Parent-to-parent and family support, parent-professional collaboration, resource meetings and workshops, information & referral, transition, future planning, and much more! Resource Libraries ~ offer over 2000 titles on developmental and other disabilities. Located at Tri-Counties Regional Center offices in Santa Maria and Santa Barbara. Mobile library services are available. Call for hours or specialized assistance. Santa Maria, 347-2775 Santa Barbara, 957-9272 Katie’s FUNd™ ~ provides social and recreational opportunities for teens and young adults with developmental disabilities. 805-683-2145 x127 Alpha Adult Services ~ provides a broad spectrum of services for adults with developmental disabilities. Each participant assists in the development of individualized services tailored to achieve his or her personal goals. 805-964-3547 Alpha Office of Advocacy ~ helps to ensure that people with developmental or intellectual disabilities have access to information, tools, and assistance to enable them to negotiate the complex service systems they rely upon. For information about free technical assistance or representation call 683-2145, ext.123
SOMETHING FOR THE SIBLINGS The Special Needs Network is a new club for the siblings of individuals with disabilities. The club will consist of several fun activities for the siblings and will also be a chance to get away and relax with others who also have siblings with disabilities. Contact: Laura King, 805.344.1403.
CLUB DIVERSITY First Friday of each month, 7pm-10pm, Jodi House, 625 Chapala St, SB. All ages welcomed, alcohol-free, inclusive event. Club Diversity is about meeting new friends, having fun & working together to eliminate barriers. $3 fee, $1 refreshments. DJ & Live Sound, DJ of Ability, Chris Benedict 805.729.1512 or djofability@gmail.com SANTA BARBARA SPECIAL NEEDS ADAPTIVE PROGRAMS WEBSITE A wide variety of 100+ community resources, events & info. www.sbSNAP.org PARENT-TO-PARENT SUPPORT Sponsored by Special Needs Network. Meets third Thursday of every month, 9:00am at Coffee Diem, 505 S. McClelland Street, SM. Contact: Diana 805.937.8756. 8 | TriLine | Winter 2015
SANTA MARIA SPECIAL EDUCATION & SUPPORT INFORMATION Kathy Rowley hosts a Yahoo Group for parents of children with special needs who live in Santa Maria. Join at http://groups. yahoo.com/group/santamariasupport. AUTISM SOCIETY OF SANTA BARBARA (ASASB) Contact: Marcia or Sandy at 805.560.3762 or info@asasb.org, www.asasb.org. SANTA MARIA AUTISM SUPPORT GROUP Has an online support group for parents of children diagnosed with autism. There is also a weekly playgroup that meets at a local park. Contact: 805.714.1187 or email begeasykr@yahoo.com. LOMPOC AUTISM SUPPORT GROUP A support group for parents and other caregivers of children diagnosed with autism. Contact: Polly Bleavins 805.347.2775 or email pollyb@alphasb.org. ALPHA PARENT GROUP A parent support group meets the second Wednesday of the month, 9:30-11:30am at the Alpha Resource Connections library at TCRC. Contact Jennifer Griffin at jgriffin@alphasb.org or call Alpha 805.683.2145 ext.103 ART OF AUTISM The Art of Autism has various events around Santa Barbara County throughout the year. Visit www.the-art-of-autism.com or email theartofautism@gmail.com. SBATA@YAHOOGROUPS.COM Online group for parents of special needs children, email info@asasb.org.
NEW DIRECTIONS TRAVEL CLUB Come join this fun club for adults with special needs who love to travel! We meet the 3rd Tuesday of each month 5pm-7pm for dinner and travel presentation. Call 805967-2841 for dates and meeting locations. AQUATIC WELLNESS AND EXERCISE TUOHY FOUNDATION AQUATIC CENTER 2415 De la Vina Street, SB. Wheelchair accessible with depths from 3 1/2 ft. to 6 1/2 ft) Aquatic exercise equipment is available to pool users. Aquatic Wellness and Exercise Programs are open to the public and instrumental in helping participants meet their personal fitness goals. Organized by Cottage Hospital Rehabilitation Center. Apts. required for classes, phone (805) 5698999, ext. 82552 or http://www.sbch.org 6TH ANNUAL DSASBC BUDDY WALK & FESTIVAL 6th Annual DSASBC Buddy Walk and Festival, Saturday, May 16, 2015, Chase Palm Park Great Meadow, Santa Barbara – Volunteer, Fundraise, Sponsor and Register online at www.dsasbc.org SPECIAL OLYMPICS SOUTHERN CALIFORNIA Santa Barbara County Region offers yearround sports programs and competitions for 350 children, teen, and adult athletes from Carpinteria, Santa Barbara, and Goleta. Fall sports for youth and adults are set to begin in August. Sports include floor hockey, bowling, soccer, tennis and softball. Call 805-884-1516 to learn more. SUMMER CAMP AND ACTIVITY GUIDE Available online at www.sbSNAP.org SANTA MARIA AND GOLETA NONVIOLENT CRISIS INTERVENTION TRAININGS Program focuses on management of disruptive, assaultive, out-of-control behavior. Initial Course designed for school staff. Refresher Course: to renew certification. Phone: 805-683-1424 or http://sbcselpa. org/Events.aspx ADAPTED GOLF PROGRAM Mondays: 9:00 to 11:00am. Santa Barbara Golf Club, 3500 McCaw Ave, Santa Barbara. Designed for persons with physical, visual
or cognitive impairments. $8.00 for 30-minute lesson, or 6 lessons for $30. Includes: putting, chipping, and/or driving with occasional use of the golf course. Program is wheelchair accessible. Organized by René Van Hoorn, RTC. 805-569-8999 x82102 3-2-1 FAMILY PLAY GROUP FOR PARENTS THAT HAVE CHILDREN BIRTH - 4 YEARS OLD WITH DOWN SYNDROME Meets monthly at various locations to help parents of children with Down syndrome birth through 4 years old and siblings of similar age to connect and play with other families. For details and monthly updates, contact carmenesq@gmail.com. NORTH COUNTY PARENT SUPPORT GROUP Meets every 1st Friday at McDonalds, Lompoc from 10 - 11:30am. Come share your experiences, meet new people and get resources while your children play. All are welcome. Website or Map: http://alphasb. org. Organized by Jennifer Griffin Phone: 683-2145 or jgriffin@alphasb.org SPRING BASEBALL Challenger league for ages 5-18. *New This Year* - Senior League for ages 19 and up. Sign ups remain open for Volunteers and Players. Feb 28 – May 16. Saturday mornings at Girsh Park. www.GoChallengers.org for more info INCLUSIVE CHEERLEADING! Spring and Fall - Santa Barbara location. Challenger Cheerleading - Inclusive of children and teens of ALL abilities to learn cheer, dance and stunts for community performances. Instructed by local Cheerleading coaches/camp instructors. Fees: $35 per child includes practice uniform and pom poms. Contact Retta Slay 805/6819165. Organized by college students and community volunteers. YOGA FOR ALL 10-12 week sessions run throughout the year at the Goleta Valley Community Center. Come stretch with Jessica Parsons; bring your own mat, towels and water bottles. $5 per session- drop in anytime. Parents welcome, 805-681-9165 or www.sbSNAP.org
Santa Barbara County MUSIC WITH SWING ALONG BAND INCLUDING WHEEL CHAIR DANCERS FOR ADULTS -SENIORS! Every Tuesday and Thursday, 10:30am to 12pm – Wheelchair users and those with special needs are welcomed to join the twice weekly adult/senior social dance group that meets at the Goleta Valley Community Center, Organized by GVCC Senior Center; Contact Amey at 805-683-1124. SB MOPS = MOTHERS OF PRE-SCHOOLERS Every other Wednesday during the school year from 9am to 11:15am – Calvary Chapel Santa Barbara. We have put this site together to help all you moms out there keep track of current MOPS activities as well as have a place to contact us or just learn more about our group! Organized by Joylyn Kovacevich Joylyn@sbmops.com CHALLENGER FOOTBALL - FLAG FOOTBALL (*ADAPTIVE) Fall 2015 9:30 - 11:00 am: Santa Barbara Location. Boys and Girls ages 5-18 with physical, developmental, intellectual challenges are invited to participate in this increasingly popular sport. Wheelchair users included! Sign up NOW! Flag Football and CheerLeading Registration forms at www. GoChallengers.org. Organized By: Central Coast Challenger Volunteers (Retta Slay) Phone: 805/681-9165 BEACH DAY AT LEDBETTER BEACH Surfing, bodyboarding, kayaking experiences and more for adventurous children with special needs. Volunteer life guards and experienced volunteers support your child in the water; adapted equipment for those with limited mobility too. Register right away for this popular program. Check website for 2015 dates: www.bestdayfoundation.org/sba ASASB SURF & SAND BEACH DAY FOR ALL August, 2015. Campus Point, SB. Learn to surf, kayak, & boogie board. info@asasb.org NEXT CHAPTER BOOK CLUB FOR ADULTS WITH INTELLECTUAL DISABILITIES (SPONSORED BY DSASBC) The Next Chapter Book Club offers weekly
opportunities for people with developmental disabilities to read and learn together, talk about books, and make friends in a relaxed, community setting. Emergent Readers (non-readers) welcomed! Volunteer facilitators lead our book clubs. Contact 805-681-9165 for locations of book clubs in Ventura and SB County; and Volunteer Facilitator Trainings.
SANTA BARBARA COUNTY
CHALLENGER SUMMER CAMP WITH THE SB FORESTERS Girsh Park, June 2015. Enjoy three mornings of T-ball, baseball skills camp and fun games, relays and summer activities by our local baseball champions, the Santa Barbara Foresters. Camp is 10 til Noon. Challenger volunteers support our players, $20. for snacks, and T-shirt! Dates and schedule online soon at www.GoChallengers.org. CHALLENGER FALL BALL SKILLS CLINICS WITH UCSB GAUCHOS Meets Six Sundays, 3-4:30 pm, begins Sept 13 at Girsh Park in Goleta, Info at www. GoChallengers.org. BASKETBALL SKILLS CLINICS AT PAGE YOUTH CENTER For kids and teens with special needs, indoor and outdoor courts. Six Tuesdays, every Spring and Fall from 3:45 - 5 pm. Check schedule at www.sbSNAP.org. MONSTER BALL GAMES AND SPORTS AT GIRSH PARK Children 4 yrs thru -age 22 can participate with MONSTER sized inflatable sports balls and games led by our volunteers - volleyball, basketball, soccer, baseball and MORE! Free t-shirt, pizza & Treats! Come ready to play - Sunday, October 25, 2- 4:30 pm at Girsh Park. www.sbSNAP.org. GUEST SPEAKER DENNIS MCGUIRE, PH.D. Author Dennis McGuire co-founded the Adult Down Syndrome Center, a unique, multidisciplinary program. He has been able to gather, distill and share his knowledge at conferences and workshops for parents and professionals. Workshops: February 9, 2015, 10:00 am-12:00 noon, Children to Early Teens February 10, 2015, 6-8:00 pm, Teens & Adults Winter 2015 | TriLine | 9
SAN LUIS OBISPO COUNTY
San Luis Obispo County PARENTS HELPING PARENTS FAMILY RESOURCE CENTER email: php@ucp-slo.org www.phpslo.org San Luis Obispo Office Atascadero Office 800.456.4153 x3277 805.461.7415 or 805.543.3277 PARENTS HELPING PARENTS FAMILY RESOURCE CENTER PHP serves families of children with special needs throughout San Luis Obispo County. Two lending libraries, which cover a wide variety of special needs topics, are equipped with toys, games and a place for children to play while their parents browse. PHP has a network of experienced staff and parents available for mentoring and support. A reliable source of current information, referrals, and training, PHP regularly e-mails a Calendar of Upcoming Events to interested families. Contact: 805.543.3277 (SLO) or 805.461.7415 (Atascadero) or php@ucp-slo.org www.facebook.com/ParentsHelpingParentsSLO/ Remember that our Parents Helping Parents South County Office is open and running! Our office is located at: 940 Ramona Avenue, Suite M Grover Beach, CA (We are right across from Ramona Park) We look forward to welcoming you! PHP SPONSORED EVENTS TRANSITION TO ADULT SERVICES Explore “when and how” your young adult will “transition” to adult services with all of the agencies involved: TCRC, school district, Social Security, IHSS, Medi-Cal, CCS. Presented by Lucia Da Silva, Community Program Specialist, Area Board 9. Thursday, February 26, 2015. 6:30-7:30 pm PHP, 3450 Broad St, Ste 103, SLO 10 | TriLine | Winter 2015
SSI OVERPAYMENT Presented by Kendra McWright, Client’s Rights Advocate/Attorney. Thursday, March 26, 6:30-7:30 pm PHP, 3450 Broad St, Ste 103, SLO MATERIALS LAB Parents can build materials for their children’s intervention program such as: picture activity schedules, icon exchange materials, visual schedules, social stories, visual prompts, etc. There will be computers, printing supplies, laminating supplies, etc. on hand. Training and support will be provided by Rebecca O’Gorman-Trimbath, BCBA. One Monday a month: February 9 and March 16 from 9-11 am. PHP 940 Ramona Ave, Suite M, Grover Beach. Please RSVP ASAP as space is limited. GET CONNECTED AT PARENTS HELPING PARENTS For parents and their children ages 0-5 years old. Come check out our new resources! Meet other parents and PHP’s staff. GROVER BEACH- GET ORGANIZED – BILINGUAL IN ENGLISH AND SPANISH! Join us at the GB PHP Library to Organize Your Child’s Records. Binders and materials provided. Space is limited, RSVP required. Wednesday, January 14, 10-11 am PHP 940 Ramona Avenue, Suite M, Grover Beach. RSVP: php@ucp-slo.org or 543-3277 SAN LUIS OBISPO – GET ORGANIZED – BILINGUAL IN ENGLISH AND SPANISH! Join us at the SLO PHP Library to Organize Your Child’s Records. Binders and materials provided. Space is limited, RSVP required. Wednesday, February 11, 10-11 am Wednesday, March 11, 3-4 pm PHP Library, 3450 Broad St, Suite 111, SLO RSVP: php@ucp-slo.org or 543-3277 ATASCADERO - GET CONNECTED Thursday, March 19, 2015. PHP Library, 7305 Morro Rd, Atascadero. Call for details 461-7415
EXPLORING DISABILITY BENFITS (FORMERLY REPRESENTATIVE PAYEE SUPPORT GROUP FOR SSI) A monthly support group for family members who have questions about their children’s SSI, Medi-cal or IHSS. We offer insight, research and support with navigation through the various issues, paperwork and services involved with disability benefits. Friday, February 27 from 10-11:30 am PHP Library, 3450 Broad St, Suite 111, SLO RSVP to php@ucp-slo.org or 543-3277 SAVE THE DATE! More information to come: SELF-DETERMINATION WitH Anastasia Bacigalupo of Area Board 9. Thursday, April 16, 6:30-7:30 PM PHP Library, 3450 Broad St, Suite 111, SLO RSVP to php@ucp-slo.org or 543-3277 TRANSITION FAIR Wednesday, April 29, 10-12 and 4-6 pm. Atascadero Thursday, April 30, 10-12 and 4-6 pm. SLO ALTERNATIVES TO CONSERVATORSHIP Presented by Katherine Mottarella. Thursday, June 25, 6:30-7:30 pm PHP Library, 3450 Broad St, Suite 111, SLO LOCAL EVENTS UNITED CEREBRAL PALSY (UCP) UCP’s Family and Youth Services are dedicated to providing full access for children and adults with disabilities in the community. Please contact UCP for more information about Kids & Teens Club, Teen Camp, Adult Camp, Leisure Club, and Community Integration Programs. 543-7102 PARENT ORIENTATION TO SPECIAL EDUCATION Brought to you be SELPA, CAC and PHP, topics will include overview of SELPA, history of IDEA, IEP info, ways to seek solutions. 5:30-6:30 pm. Tuesday, January 27, TCRC Building, 3450
Broad St, St 111, SLO (RSVP by 1/20) Thursday March 26, Morro Rd Education Center, 8005 Morro Rd, Atascadero (RSVP by 3/19). For details and to RSVP, call 782-7301
THE CENTRAL COAST AUTISM SPECTRUM CENTER (CCASC) Is in the planning stages of the Walk for Autism and Awareness Fair on Sunday April 19, 2015. Monthly planning meetings are underway; if you would like to be involved contact CCASC at 763-1100. www.autismspectrumcenter.com TRANSITIONS MENTAL HEALTH ASSOCIATION (TMHA) Wellness centers in SLO, Arroyo Grande and Atascadero offer a calendar full of classes and support groups. Contact 805-503-0350. NATIONAL ALLIANCE ON MENTAL HEALTH (NAMI) If you have a loved one with mental illness, join NAMI and TMHA for Family-to-Family, a FREE 12 session education program. Topics include Symptoms, Brain Biology and Medications, Communication Skills, Rehabilitation, and Taking Care of Ourselves. SLO classes start Monday, February 2. Paso Robles classes start Wednesday,
San Luis Obispo County February 4. Registration is required. Contact John Klimala at 550-3889. www.nami.org/f2f PARENT CONNECTION TRAINING SERIES February 6 & 13: Active Parenting (Birth-5), with Michele Gordon February 20: No-Drama Discipline Workshop, with Tina Payne Bryson Fridays, 9:00-noon SLCUSD Adult School Room H3, 1500 Lizzie Street, San Luis Obispo Contact: Michele Gordon, Parent Connection of SLO County (805) 543-3700 www.sloparents.org PROFESSIONAL DEVELOPMENT WORKSHOP SERIES EVIDENCEBASED PRACTICE IN AUTISM California Department of Education Diagnostic Center Central California Presenters: Ananda Aspen Michelle Austin. Sponsored by SELPA. Wednesday, February 25, 2015 from 3:305:00 PM Pivotal Response Treatment (PRT) for Developing Language in Special Education Classrooms Wednesday, March 18, 2015, 3:30-5:00 PM Classroom Pivotal Response Treatment (CPRT) to Increase Engagement & Motivation Wednesday, April 29, 2015, 3:30-5:00 PM Visual Schedules, Transitions and Routines that Build Independence
The latest exhibit will begin on 2/2/15 and the theme is Wildlife Photography. You can meet the artist, Sean McAlpine, during a reception on February 6, 2015 from 3 to 5pm. STRIDE’S FRIDAY CLUB A free weekly program put on in conjunction with the SLO Special Olympics. Every Friday for three hours, between 10 am and 1 pm (in one hour sessions by age group), kinesiology students interact with individuals with special needs and partake in different forms of sport and exercise together. It takes place at our Recreation Center, in the main gym. Where: Cal Poly’s Recreation Center Main Gym When: Every Friday 10-11 am (elementary -high school students) 11-12 pm (young adults)12-1 pm (older adults) For more information, email kinesiology@calpoly.edu or Michael Lara at mlara@sosc.org
SAN LUIS OBISPO COUNTY
SWIMMING Paso Robles Sports Center has two instructors who have experience with special needs: Jodi McDowell and Jaclyn Parson. Group, semi-private and private lessons available. Contact jmcdowell@caclubs.com, 805-239-7397
Donate to the TCRC Client Help Fund!
MORRO ROAD EDUCATION CENTER (MREC) 8005 MORRO RD. ATASCADERO There is no fee. Special educators, parents and care-providers are welcome. SLP CEUs Available Please call or email Debbie Stone to register at least two weeks before the date of the workshop. Phone: 782-7302 Email: dstone@sloselpa.org
This fund assists people with developmental disabilities and their families in emergency and crisis situations when the State of California and other charitable organizations will not pay.
CALL FOR ARTISTS Did you know that the Regional Center displays art made by its clients on the walls of the hallway? If you know of a talented individual that would enjoy this opportunity, contact Marianne at TCRC. 543-2833
How You Can Help Checks made payable to: TCRC – Client Help Fund, 520 E. Montecito Street, Santa Barbara, CA 93103 Tax ID #: 95-2623230
Funds Help People Directly 100% of donations go to help those in need. Funds at Low Level Our 2015 campaign goal is $30,000.
Winter 2015 | TriLine | 11
VENTURA COUNTY
Ventura County ACTIVITIES SOCIAL TIME FOR ADULTS RECEIVING SERVICES (BILINGUAL) SANTA PAULA Meets 2nd Sunday of the month. Come, bring a friend or just come meet new people, for conversation, playing games or for refreshments and some fresh air.
RAINBOW CONNECTION FAMILY RESOURCE CENTER email: rainbow@tri-counties.org Oxnard Office: 2401 East Gonzales Road, #100, Oxnard, CA 93036 Monday through Friday 9:00am to 5:00pm (805) 485-9643 Main Phone (800) 332-3679 Toll Free (805) 485-9892 Spanish Line (805) 278-9056 Fax Simi Valley Office: 1900 Los Angeles Ave, Simi Valley, CA 93065 Monday through Thursday and by appointment 9:00am to 1:00pm (805)823-2325 Main Phone (805) 485-9892 Spanish Line and by appointment Website: http://rainbowconnectionfrc.weebly.com or find us at Facebook: http://www. facebook.com/RainbowConnectionFRC.
RAINBOW MOMS DAY OUT - OXNARD (SPANISH) Typically meets 3rd week of the month. Come and enjoy time with other mothers of children with special needs and relax. AUTISM SUPPORT AUTISM PARENT SUPPORT GROUP (ENGLISH) Meets 2nd Tuesday 7 - 8:30pm in Oxnard. Families meet to share the experiences they’ve had with their children with Autism and to learn about resources. AUTISMO SUPPORT GROUP (SPANISH) Meets 1st Thursday of the month, 7 - 8:30pm in Oxnard Families meet to share their experiences, resources and information. DOWN SYNDROME SUPPORT DOWN SYNDROME SUPPORT GROUP - SPANISH Meets last Tuesday of the month, in Oxnard 6:30 pm – 8:00 pm, Families have open discussions on issues related to raising children with Down syndrome. SUPPORT FOR ALL SPECIAL NEEDS
Rainbow Connection provides support, information, training and activities for families. Here is a list of on-going support groups: We encourage you to attend a support group at least once. You will be surprised at how much it will help you and how much you can help others. As there might not always be a support group available for a specific diagnosis, we try to provide a parent match upon request. Please contact us to register or for a copy of the current “What’s Happening at Rainbow?” schedule of activities. 12 | TriLine | Winter 2015
ADULTHOOD (22YRS THROUGH LIFE, TCRC PERSON SERVED): THE JOURNEY CONTINUES “SPECIAL FAMILY NETWORK “ 6:30pm - 8pm in Oxnard Meets 2nd Tuesday of every other month. English Parents/caregivers support group for families who have an adult family member ages 22 and older with special needs. Join us as we endeavor this journey together as well as share resources for our grown children. *Registration Required.
NBVC (NAVAL BASE VENTURA COUNTY) SPECIAL PARENTS NETWORK 2nd Wednesday of the month Time & place varies, please contact us. Parents Helping Parents Support Group for active and retired military families with children with special needs. For information and to RSVP please contact Rainbow. SANTA PAULA SUPPORT GROUP - SPANISH Meets 1st Monday of the month 5:30pm – 7:00pm. Families meet to share the experiences and resources. SPECIAL FAMILIES SUPPORT GROUP - SPANISH Meets 1st Friday of the month 6:30pm – 8pm in Oxnard Families meet to share the experiences and resources. SIMI PARENTS OF ADULT CHILDREN CONNECTION - SPANISH Meets 1st Friday of the month 11:30am – 1pm. Families of adult children with special needs meet to connect & share information. SIMI SPECIAL FAMILIES SUPPORT GROUP - SPANISH 3rd Friday of the month 11:30 am – 1:00 pm. Families of school aged children (Under 18yrs) meet to share experiences and talk about raising children with special needs. SANTA CLARA SUPPORT GROUP (FILLMORE, PIRU) - SPANISH Meets 3rd Tuesday of the month 10:30am – 12 noon. Families meet to share the experiences they’ve had with their children with special needs and learn about resources. SIMI SPECIAL PARENTS NETWORK - ENGLISH 9:30 – 11am, 3rd Tuesday of the month in Simi. Come and join us for a cup of coffee, learn about our resources and talk about issues related to raising children with special needs. SPANISH SUPPORT GROUP PARTNERSHIP These support groups are sponsored by Rainbow Connection in collaboration with professionals from community service agencies. Families of children with special
Ventura County
needs (0-3 yrs) have a Pot-luck & social time, followed by a guest speaker. Volunteers help parents watch children.
OTHER COMMUNITY SUPPORT GROUPS The following support groups can be contacted directly.
SIMI “APRENDIENDO JUNTOS” SUPPORT GROUP 5:30 – 7:30pm Meets 1st Wed of the month.
CHALLENGER BASEBALL NOW IN VENTURA Co-ed, ages 5-Highschool, registration starts Jan, Season runs from March-May. www.GoChallengers.org 805-681-9165.
SANTA PAULA “FAMILIAS UNIDAS” SUPPORT 5:30 – 7:30pm Group Meets 2nd Wednesday of the month. INFORMATIONAL THE IEP BASICS – ENGLISH Every second Monday of the month, 12 noon – 1pm, via Conference Call, Facilitated by Laurie Jordan, Director, Rainbow Connection F.R.C. Join us by phone to learn about the basics of IEP’s (Individual Education Program) Different topics will be presented each time with the opportunity for discussion at the end. Please register to receive the phone number, access code and have any handouts sent to you in advance. ALL ABOUT ME Create your child’s (or adult served by TCRC) Personal Profile. This is a great way to share valuable information. Simply give a copy of the Personal Profile to the people who will be interacting and working with your child – the teacher, aides, therapists, etc. Give us a call and we’ll help you put together your child’s very own Personal Profile. Individual Appointments can be scheduled upon request. For persons receiving services through TCRC. WHAT’S NEXT AFTER EARLY START? For Your Child with Special Needs Will your child be turning 3 years old and transitioning out of the Early Start Program? Changes can be confusing. Let’s make the transition a little easier. Schedule an appointment today! You will receive a free booklet that has been helpful to other parents. Individual Appointments can be scheduled upon request. For persons receiving services through TCRC.
BRANDON’S BUDDIES A free play date for children of all abilities. 1st Sat of the month in Calabasas. To RSVP call Dina Kaplan 818 222-8118 brandonsbuddies@pacbell.net THE FUN CLUB A social and recreational opportunity for persons 5 -15 and 16 yrs & older with special needs through the City of Oxnard Adaptive Program. Call 805 385-8019 for info. CONEJO RECREATION AND PARK DISTRICT’S THERAPEUTIC UNIT Children and adults from all over the county attend activities. It is a model program throughout the State. The Director is Cecilia Laufenberg. Thousand Oaks (805) 381-2739 http://www.crpd.org/parkfac/ therapeuticrecreation/program/default.asp SPECIAL OLYMPICS VENTURA COUNTY Special Olympics Ventura County offers training and competition opportunities in 10 different year-round sports at over 20 different training sites throughout Ventura County. The Ventura County program not only provides people with intellectual disabilities with physical fitness and athletic competition, but also social interaction and community involvement. (805) 654-7787. www.vcso.org FRIENDSHIP CIRCLE Designed to foster a relationship between community teenagers and children giving them a chance to develop social skills and experience diverse activities. Programs offered are Sports Night, Friends at Home,
Gymnastics Programs, Sunday Circle, and a Winter Camp that includes Rock Climbing and Sibling workshops. Agoura Hills (818) 865-2233 www.FriendshipCircleCa.org
VENTURA COUNTY
AUTISM SOCIETY VENTURA COUNTY (ASVC) ASVC holds Community Talk Nights usually on the third Friday of the month from 7-9pm in which guest speakers present on topics important to parents, and parents are able to mingle, socialize and network. Free onsite childcare is usually provided. http://www.autismventura.org/events/ For more information call 805-496-1632 or www.autismventura.org CENTER4SPECIALNEEDS Organizes Mom’s & Dad’s Night Out events and events and trainings. Support for families with children with special needs. http://center4specialneeds.org PAUSE4KIDS INC. – ENGLISH SUPPORT GROUP For more info go to: http://pause4kids.org/ or leave a message at 805-497-9596 THE TRANSITIONS SUPPORT GROUP For parents of children and young adults aged 10 – 28 and young adults who have special needs aged 18-28. Please contact Susan – susan@baukus.net CONNECTING HIGH SCHOOL & POST SECONDARY PARENTS GROUP (BILINGUAL) 12/10 6:30pm-8pm in Oxnard 2nd Tuesday of every other month *Groups meet separately in English and Spanish. An informal group of parents with students in high school and post secondary education who meet to share information and concerns on their children’s future. UNITED PARENTS Assists families of children with Mental, Emotional, and Behavioral Disorders. Office (805) 384-1555
With each issue of the TriLine, we provide information on some of the resources available to families within the Tri-Counties area. Please call to confirm dates and times of events. Check with your Service Coordinator for information on other resources available to you in your area. Winter 2015 | TriLine | 13
A Place of One’s Own
by Heather Wennergren & Patricia Forgey Chad Brunot stands in the doorway of his very own home, sweet home. “Today is Day Number 80,” he announces. He moved in last June after surmounting great challenges to arrive there, fortified by his typical optimism and the support of his TCRC Service Coordinator and mentor from SAGE (a TCRC service provider). Last year, at the age of 37, Chad overcame car accidents and the death of his mother from cancer (with no other family). He then suddenly found himself forced out of his own home by a former family friend who betrayed him and his mother, taking the car, money and the mobile home left to him. An attempt was made to take his trust savings as well. This betrayal was hard on Chad. Chad’s TCRC Service Coordinator, Soyla Ceja, and Community Mentor from SAGE, Juan Perez, strongly advocated for the former friend to return Chad’s property. With assistance from Adult Protective Services, the District Attorney and other local agencies, they were able to retrieve the mobile home title and the trust, but not the car or other possessions.
Juan Perez, Chad Brunot and Soyla Ceja
“I wanted to stay with my friend in Fillmore, but I couldn’t stay for longer than a week,” Chad remembers. He had to give up his beloved dog Harley a few days after Christmas. Chad spent time “couch surfing” until Soyla found an opening at the Harvard Place Apartments, in Santa Paula. Ten apartments in this complex are set aside for individuals with developmental disabilities, using rental subsidies through the Housing Choice Voucher Program. Chad now has a furnished place of his own. He bought his new television and furniture, using his own money. “Everyone 14 | TriLine | Winter 2015
Chad on his balcony
has really worked like a team,” Juan said. “Sometimes I’d call him off hours, just to make sure he was okay. Otherwise, how could I sleep at night?” Juan has been teaching him independent living skills, helping him with laundry, paying bills and budgeting. Juan considers Chad a member of his extended family, and they often share holidays; both he and Soyla check on Chad regularly. Chad’s goals include getting his driver’s license. He currently relies on buses and walking to get around. Chad is attending stress management classes weekly, and looking forward to his next opportunity to work in the malls as the Easter Bunny, a gig he’s performed regularly over the years and well loves. Thanks to the strong support he’s found with his friends and advocates at TCRC and SAGE, he’s settled in and smiling. “I’d like to someday have a family of my own,” he says, looking to the future. Service Coordinator, Soyla Ceja, puts it simply. “Despite all of the challenges with Chad’s case, this is a very happy moment for Chad and a very rewarding one for me. Hard work does pay off. Thank you to Jackson Wheeler, (Manager of Services and Supports, Ventura Adult Team) and to Juan Perez at SAGE for all of the support.” A Regional Retrospective Jackson Wheeler, Manager of Services and Supports, shared the history of affordable housing in the TCRC service area.
“Affordable housing is a necessary partner in the evolution of people living as independently as possible in the community, with supports such as Supported Living Services as well as the training from Independent Living Services,” he began. “One of the key advocates for affordable housing opportunities in Ventura County was Rodney Fernandez, founder of the Cabrillo Economic Development Corporation (CEDC).” Mr. Fernandez, who passed away in October, 2013, worked hard to establish affordable housing in Ventura County, initially advocating for farm workers to buy their own living quarters. Through years of developing various projects that assisted individuals with low incomes to rent or own, CEDC partnered with TCRC to provide affording housing to individuals with developmental disabilities. Jackson continued, “From the 1970’s when only 2% of affordable housing was designated for individuals with disabilities to the current continuing challenges of availability of affordable units for families and individuals, progress has been made in determining that people with developmental disabilities can lead fulfilling lives independently in the community.” “One barrier to an independent community life was access to affordable housing,” he pointed out. “Individuals earning minimum wage couldn’t make rent or purchase a house. A question from developers of housing was ‘Can individuals manage a
household, take care of a home, replace a light bulb?’ And the answer was ‘yes!’” A milestone along the way, in the late 1970s, was support from the Housing Authority of the City of Buenaventura (Ventura), which offered access to a 16-unit apartment building for community living for adults with developmental disabilities to The Arc of Ventura County. At that time, supplemental income was less than $200/month; a large one-bedroom rented for $150/month. TCRC’s message, expressed by Jackson and others, was that disability had no age limits, and younger people with disabilities could maintain their households and should have access to living in the community. Although The Arc of Ventura County sought an inclusive community with individuals with disabilities lived together with other community members, Jackson thought, “This was a fine start.” The building was divided into 12 apartments and two offices for Arc staff. The building opened in 1982 and is still a residence and called “Training for independent Living (TIL)”. In 2014, TCRC’s staff, leadership, and partners are identifying housing opportunities for people who receive services.
Tri-Counties Community Housing Corporation (TCCHC), TCRC’s non-profit service provider for housing development across the three counties, purchases housing with start-up funding from the Department of Developmental Services (DDS) for moving individuals from the Developmental Centers to the community, as well as through other methods of funding. TCCHC also advocates for and assists in the development of affordable housing for individuals living in the three counties. The Coalition for Housing Accessibility, Needs, Choices and Equality (CHANCE), is a TCRC service provider with the purpose of finding affordable housing for individuals in Santa Barbara County. Multiple Housing Authorities and other non-profit housing development groups are also part of the infrastructure of housing development efforts for people with developmental disabilities. Jackson comments on the current situation, “Now the waiting list in Ventura County (for a Section 8 affordable housing voucher) is about six or seven years. We encourage families of individuals with disabilities to apply for subsidized housing when their son or daughter turns eighteen. Many families and individuals say,
‘we’re not ready,’… that’s okay, because the housing isn’t ready either, but in five or ten years, if you decide to make that change, then your name’s already on the list. That’s the strategy.” “I like the joyful expectation that we are figuring it out. Some of the federal programs try to find the one answer; different communities are getting together and planning for themselves. People continue to try to resolve housing issues, to keep coming up with creative solutions. Of course, fundraising and sources of funding are critical to the process.” Jackson believes that when people can afford housing, they have a bit more disposable income and can participate more fully in their communities. He says, “That’s really what I think affordable housing is all about, the opportunity for people to participate in community regardless of income.” Affordable housing has provided people with disabilities the opportunity to participate fully in the American dream of having a place of one’s own. “I don’t think enough can be said about having one’s own home,” summarized Jackson. “I really mean in terms of an apartment; it’s your castle. Not just for people with disabilities but for all people.”
The Arc of Ventura County Celebrates 60th Anniversary
Kenny Backer
by Heather Wennergren, Media Coordinator, Photo credit: Kenny Backer Photography
On Saturday, August 2, 2014, a gala celebration took place at Freedom Park in Camarillo to commemorate The Arc of Ventura County’s 60th Anniversary of empowering individuals with intellectual and developmental disabilities. This special event also featured the first annual Fred W. Robinson Classic Car Show, in honor of the agency’s former CEO and classic car enthusiast, who recently retired after 22 years of dedicated service.
It was a wonderful day of community and opportunity to celebrate the achievements of people with developmental disabilities, their families, support staff, advocates for change and The Arc movement nationwide. The event featured 80 unique and beautiful classic cars, kids play zone, artwork, gourmet food trucks and music set to the sounds of the 50’s and 60’s provided by four local bands. “The Arc has provided supports and services to thousands of Ventura County residents. We are dedicated to promoting opportunities that will assist the individuals we serve to enjoy a life of dignity, respect and inclusion. We look forward to our next sixty years of service in Ventura County,” stated Patricia Schulz, Chief Executive Officer.
The Arc of Ventura County was established in 1954 by a group of parents and teachers who led a grassroots movement to protect the rights and improve the lives of children with developmental disabilities. Shirley Dove, TCADD Board member and parent participated in this early advocacy. Today, The Arc serves nearly 700 individuals annually and offers programs and services throughout Ventura County that support participants to utilize their creativity, skills and talents to cultivate a community of inclusion and respect for people with disabilities. For more information on The Arc of Ventura County’s programs and services, contact (805) 650-8611 or visit www.arcvc.org.
Winter 2015 | TriLine | 15
NONPROFIT ORG. U.S. Postage PAID Santa Barbara CA Permit No. 359
Tri-Counties Regional Center 520 E. Montecito Street Santa Barbara, CA 93103
Greetings from the President by Rachel Huff, President, TCADD Board of Directors trend may be seen in: • the restoration of funding for Early Start services with the eligibility criteria returning to that prior to the 2009 cuts We are actively seeking help in • funding for state level the form of new TCADD Board changes in minimum wage members! and federal requirements for overtime pay Your TCADD Board members • the release of restriction handle the multiple for funding of insurance responsibilities of governance deductibles for autism with an eye for the changes services and potential enhancements to These changes create a services through: different picture from past • tracking of legislative action experience. A set of positive • careful monitoring of challenges and opportunities is budgetary resources & before us rather than a battle to challenges minimize losses. • and oversight of the strategic outcomes for the regional A variety of bills voted into center throughout the year. statute in 2014 provide for This year has been no different multiple opportunities for than many, in terms of the people with developmental ongoing review of budgetary disabilities. Self Determination decisions by the Governor Services (SB 468), Employment and legislative committees, First Policy (AB 1041) and impact on the regional center Adult Education Consortium of Trailer Bill Language, and Program (AB 86), have promise the continued growth of the for flexibility in funding population to be served. services, future funding for post-secondary education Won’t you consider joining and growth in employment. us? Search “Board app” on our The TCADD Government website. and Community Relations Committee monitors these I am pleased to share that the types of developments. 2014 state budgetary decisions The regional center staff is do not present such an ominous tasked with ensuring the direction as in recent years. This implementation of Trailer Bill
Language. TCRC has developed effective systems for doing so. TCRC leadership is successfully meeting desired outcomes in 2014 for the 2013 - 2015 Strategic Performance Plan. For example, information and supports are being developed for families in transition; communications created by TCRC are being evaluated to ensure that the content meets the needs of the reader. And, person centered principles continue to be emphasized through operational activities such as performance coaching and review. The stories in this TriLine issue convey TCRC’s person centered approach, whether it be through the support of a person in crisis, celebrating the artistic and creative work of a person, or focusing on the needs to keep people physically and emotional secure and safe. The TriLine always defines the spirit of the TCRC work environment; staff supporting people receiving services with dedication, and persons served demonstrating spirit and optimism. I’m proud to be part of this winning combination.
Bring Your Skills and Ideas to the TCADD Board Contributing to the well being of persons served by TCRC is a rewarding experience. Many TCADD board members have served their terms and seats for these valued roles are opening. Family members are encouraged to apply, especially those with management, public relations, education or other non-profit experience. Please email BoardSecretary@tri-counties.org for more information. Or visit our website at www.tri-counties.org, select TCADD Board of Directors, then Membership / Role. We need your help to improve quality of life and protect the rights of individuals with developmental disabilities. Editor & Design: Heather Wennergren | Writing Team: Heather Wennergren, Patricia Forgey & Nancy Black Translation: Carlos Cerecedo and various translators | Photography: Isaac Hernandez and various photographers
Tri-Counties Regional Center Headquarters 520 E. Montecito Street Santa Barbara, CA 93103 805.962.7881 Tel 800.322.6994 Toll-Free www.tri-counties.org Tri-Counties Association for the Developmentally Disabled Inc. (TCADD) Board of Directors Rachel Huff President
Diane Figueroa Vice President
Michael Kaszycki Secretary
Sharon Francis VAC Representative Tim Farrar, PAC Representative Chris Correa Shirley Dove Mani Gaur Casey Hamlin Donna Moore Shanti Nadiminti Susan Rasmussen Robin Rosso Ryan Wilkinson
2015 Upcoming Board Meetings March 7....................9:00 am (SB) May 9.................... 10:00 am (SM) June 6.....................10:00 am (OX) 2015 Upcoming Town Hall Meetings March 11............. Santa Barbara May 27.......................... Simi Valley July 15........................ Santa Maria