January 2023 Special Needs Living Akron/Canton

Page 36

THE (MISS) AMAZING AMBER SAVAGE

PHOTO
JANUARY 2023
4 January 2023

JANUARY

(10) Paying it Forward (12) Pictures Say Thousands of Words … about Ian Alaniz (14) Important Community Connections (24) The Amazing Amber Savage (28) Community Impact: Akron/ Canton Airport (32) Parent Perspective: Sarah Heckert (34) Youth Feature: Adilene Korpi (36) Nonprofit Spotlight: Hammer & Nails (39) Community Employment Success Story: Paul Gines (40) Sponsor Spotlight: The Workshop Inc. (44) Inspirational Perspective: Elliot Smith (46) Community Organization: Springfield Sparkles (51) Community Impact Q&A: Amy Whitacre (54) Final Take

Akron & Canton Special Needs Living 5
Advertising Inquiries Rick Miller (330) 283-8462 rick.miller@n2co.com
ISSUE
Scan the QR Code to Like, Subscribe or Nominate: Facebook (@snl.cak) Instagram (special_needs_cak) Nonprofit Spotlight: Hammer & Nails Community Organization: Springfield Sparkles The Amazing Amber Savage Sponsor Spotlight: The Workshop Inc. Pictures Say Thousands of Words … about Ian Alaniz
Perspective: Sarah Heckert Inspirational Perspective: Elliot Smith Youth Feature: Adilene
PREVIEW
Parent
Korpi
WE HAVE TO OFFER CONNECTING PEOPLE + COMMUNITY Get To Know

SENIOR

GentleBrook

Akron & Canton Special Needs Living
SERVICES DEVELOPMENTAL DISABILITIES SERVICES COMMUNITY
provides residential options for seniors looking to age in place.
The HomeStead: Our 49 bed assisted living and memory care facility
The Villas: Our independent living 55+ condominium community
GentleBrook fosters independence for individuals with intellectual and/or developmental disabilities by offering programs and services through our adult day programs and residential support services, including residential waiver services, and intermediate care facilities (ICF) in Hartville and West Lafayette. In July of 2022, GentleBrook will take over as the provider of adult day services for the Holmes County Board of Developmental Disabilities.
GentleBrook serves the community through two businesses in Hartville. GentleBrook Greenhouse + Farm: GentleBrook Greenhouse + Farm has a wide selection of beautiful bedding plants, hanging baskets, house plants & succulents. Open to the public spring through fall.
We
GentleBrook Corporate Office 880 Sunnyside SW, Hartville, Ohio 44632 330-877-7700 | gentlebrook.org |
The SportsPlex: An indoor sports recreation center with a full basketball court and a 7,500 sq. ft. turfed multi-sport training facility for individual and team use. GentleBrook is a not-for-profit social purpose enterprise that believes in connecting people + community through services and businesses.
believe all human life is a sacred gift and most fulfilled in community with others.

This section is here to give our readers easier access when searching for a trusted community partner to use. Get to know the businesses who make this magazine possible. Please support them in return and thank them if you get the chance!

ABA SERVICES

Applied Behavioral Connections

Kristen Maple (330) 309-3133 info@appliedbehavioralconnections.com

ACCESSIBILITY & SAFETY MODIFICATIONS

JTEK Solutions Group, LLC

Jared Chevraux (330) 323-0943 www.jtekgroup.com

ACT PREP & TUTORING

Bright Minds Learning Academy

Sheila Lahoti 5368 Fulton Dr. NW Canton, OH 44646 (330) 966-7226 www.brightmindsla.us

ADULT DAY SUPPORT

Premier Approach, LLC

Christian Manns (330) 312-6909 www.facebook.com/PremierApproachLLC

ADULT VOCATIONAL SERVICES

CLW (330) 546-0057 www.theclw.com

ANIMAL FENCE/TRAINING

DogWatch of Northeast Ohio

Donnie Myers (330) 915-6036 www.dogwatchneo.com

ART STUDIO

BZTAT Studios, LLC (330) 371-3150 www.bztatstudios.com

BOOKKEEPING/ACCOUNTING

Paragon Accounting and Business Services, Inc. (330) 575-2291 www.paragonabs.com

CHIROPRACTIC/WELLNESS

Vogelgesang Family Wellness & Chiropractic Center (330) 818-1212 www.vogelgesangfamilychiropracticinc.com

CHURCH

First Christian Church (330) 456-2600 www.firstchristian.com

The Chapel Green

Amy Troyer (330) 315-5501 www.facebook.com/greenspecialneeds

COFFEE SHOP

Whole Latte Love Cafe (234) 360-2233 www.wholelattelovecafe.org

COUNTY DISABILITIES BOARD

Stark Board of Developmental Disabilities Lisa Parramore (330) 479-3934 www.starkdd.org

DAYCARE/PRESCHOOL

Once Upon A Daycare Rosie Ebner (330) 990-1466 www.onceuponadaycare.org

Once Upon A Daycare (330) 990-1466

DEVELOPMENTAL DISABILITY CARE

Easterseals Northern Ohio Conor McGarvey (234) 417-0250 www.easterseals.com/noh

The Workshops, Inc

Rachel Doty (330) 497-3399 www.choosetwi.com

DISABILITY RESOURCES

REM Ohio, Inc Jo Spargo (330) 644-9730 www.rem-oh.com

EDUCATION SERVICES

Jason’s Place

Melissa Hadnett (234) 714-9815 Facebook

Red Line Advocacy (234) 678-9622 www.redlineadvocacy.com

EMPLOYMENT/STAFFING

Express Employment Professionals (330) 239-8709 www.expresspros.com/cantonoh

ENTERTAINMENT AND FOOD

Stark Flavor (330) 704-1227 www.StarkFlavor.com

EQUESTRIAN CENTER

Pegasus Farm Shelley Sprang (330) 935-2300 www.pegasusfarm.org

FINANCIAL PLANNING

Skylight Financial Group Kathryn Bryan (216) 592-7319 www.skylightfinancialgroup.com

FURNITURE - AMISH

Dutch Craft Furniture (330) 893-4041 www.dutchcraftfurniture.com

HARDSCAPES/ LANDSCAPES

Campbell Landscaping (330) 933-9091 www.campbelllandscaping.com

HOME BUILDER

Charis Homes Glenna Wilson (330) 833-4527 www.charishomes.com

HOME CARE SERVICES

SafeInHome - Ohio (740) 207-5800 www.safeinhome.com

HOUSE OF WORSHIP

Harvestime Temple (330) 877-6544 www.harvestimeonline.org

8 January 2023

INDEPENDENT PRIVATE SCHOOL

Wings of Change Therapy Inc

Erica Myers (234) 334-0044 www.wingsofchangetherapyinc.com

INSURANCE AGENT

American Family - Richard Corns Haley Seifert (234) 714-2300

JOB PLACEMENT SERVICES

Creative Rehab (330) 806-0497 www.creativerehab.info

Independent Employment Services

Malcolm Porter (330) 388-5778 www.independentemploy.com

MENTAL HEALTH SERVICES

Carve Your Own Path, Inc. (330) 426-7885 www.carvemypath.org

NON-PROFIT

GentleBrook Francie Kell (330) 877-7700 www.gentlebrook.org

NON-PROFIT ORGANIZATION

GiGi’s Playhouse Canton Megan Vance (330) 493-9114 www.gigisplayhouse.org/canton

The Down Syndrome Association of Northeast Ohio (216) 447-8763 www.dsaneo.org

OUTDOOR LIVING

Kitzmiller Design Solutions (330) 614-4798 www.kitzmillerdesignsolutions.com

PERSONAL LEGACY PORTFOLIO DEVELOPMENT

The Preferred Legacy Trust Company Tiffany Rockstroh (330) 209-9229 www.preferredlegacy.com

PIZZA DINE-IN & DELIVERY

Bosco’s Pizza Kitchen (234) 258-4800 www.Boscospizzakitchen.com

POOL WATER DELIVERY Strouble Water Hauling (330) 877-6795 www.stroubletrucking.com

PRIVATE SCHOOL

The Golden Key Center for Exceptional Children Gina Bannevich (330) 493-4400 www.goldenkeyschool.com

REALTOR®

eXp Realty : The Amy Wengerd Group Amy Wengerd (330) 681-6090 www.amysguarantee.com

RESTORATION & CLEANING

Brahlers Cleaning & Restoration Stacy Ignacio (330) 834-0008 www.brahlerscrr.com

SCHOOLS - PRIVATE SCHOOLS

Julie Billiart Schools (216) 691-8916 www.juliebilliartschools.org

SUPPORT GROUP Sharing Solutions www.sharingsolutions.info

THEATRE

Canton Palace Theatre Laura Strader (330) 454-8172 www.cantonpalacetheatre.org

TRANSPORTATION PROVIDER CLEARVIEW DEVELOPMENTAL SERVICES Dean Miller (330) 224-4403 Facebook

n2co.com

Delivering Neighborhood Connections © 2023 The N2 Company, Inc.

DISCLAIMER: This publication is owned by The N2 Company and is not affiliated with or sponsored by any club, developer, or homeowners association. Articles and advertisements in this publication and opinions expressed therein do not necessarily reflect the views of N2 but remain solely those of the author(s) or advertiser(s). The paid advertisements contained within this magazine are not endorsed or recommended by N2.

Akron & Canton Special Needs Living 9

PAYING IT FORWARD

Local businesses supporting nonprofit organizations that impact our Special Needs community

The businesses shown on this page are those committing financial support to local community resources that couldn’t afford to advertise in Akron & Canton Special Needs Living magazine on their own. Feel free to repay the generosity these local business owners are showing by giving them a Like and Follow on Social Media, a Review on Google or Facebook or if you have a need that can be met by one of these businesses, give them a call. I’m sure they will be thrilled to serve you!

ANDY CAMPBELL www.campbelllandscaping.com andy@campbelllandscaping.com (Carve Your Own Path)

BRANDI PINE

www.expresspros.com/cantonoh brandi.pine@expresspros.com (First Christian Church)

GLENNA WILSON www.charishomes.com gwilson@charishomes.com (Whole Latte Love Cafe)

BETH STROUBLE www.stroubletrucking.com Stroubletrucking@yahoo.com (GiGi’s Playhouse)

MONICA RANKIN www.paragonabs.com monica@paragonabs.com (GiGi’s Playhouse)

DEAN MILLER www.facebook.com/clearviewdsi clearviewdsi@gmail.com (Sharing Solutions)

MIKE STURDIVANT www.StarkFlavor.com info@starkflavor.com (Whole Latte Love Cafe)

10 January 2023

Beauty Belongs to Everyone

Introducing Ian Alaniz simply through images

12 January 2023 PICTURES SAY THOUSANDS OF WORDS ABOUT IAN ALANIZ
Creative Rehab is CARF accredited and partners with Opportunities for Ohioans with Disabilities (OOD), a state agency, to help individuals with disabilities get and keep jobs in the community. Creative Rehab | 330-806-0497 | www.creativerehab.info Services Offered: Pre-ETS Summer Youth Work Experience Career Exploration Community Based Assessment Community Based Work Adjustment Job Coaching - On the Job Support Job Development (Job Placement) Job Retention Ask To Work with Creative Rehab TODAY!

IMPORTANT COMMUNITY CONNECTIONS

Need to know who to connect with to ask a question? This is where you find out who you need to know!

AKRON BLIND CENTER

Phone: 330-253-2555 Website: www.akronblindcenter.org

The Akron Blind Center Inc. is a membership-based nonprofit organization incorporated in 1948 to serve the blind and lowvision communities. They also provide resources, programs, services and classes for Summit and surrounding counties.

AKRON CHILDREN’S HOSPITAL

Phone: 330-543-1000 Website: www.akronchildrens.org

Akron Children’s Hospital has been caring for children since 1890, and its pediatric specialties are ranked among the nation’s best by U.S. News & World Report. With two hospital campuses, four health centers, and 50+ primary and specialty care locations throughout Ohio, they’re making it easier for today’s busy families to find the high-quality care they need.

ARC OF OHIO

Phone: 234-571-5689 Website: www.thearcofohio.org

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

AUTISM SOCIETY OF GREATER AKRON

Phone: 330-940-1441 Website: www.autismakron.org

The Autism Society is the nation’s oldest and largest grassroots autism organization committed to improving the lives of those affected by autism. The Greater Akron affiliate was founded in 1987 by parent volunteers of children with autism.

BUREAU OF SERVICES FOR THE VISUALLY IMPAIRED (BSVI)

Website: www.ood.ohio.gov/individuals-with-disabilities/ services/services-for-the-visually-impaired

MEDINA, PORTAGE, AND SUMMIT COUNTIES

Phone: 330-643-3080

CARROLL AND STARK COUNTIES

Phone: 330-438-0500

BSVI assists eligible people, beginning at age 14, with low vision and blindness by providing direct, personalized

services to assist them in finding and retaining meaningful work and personal independence. Basic services include personal and work adjustment training, vocational training, mental and physical restoration, and placement assistance.

14 January 2023
COMMUNITY CONNECTIONS

CALL 211

Phone: 211 Website: www.211.org

Serving four counties and covering 1.5 million people in Ohio, the United Way 2-1-1 Help Center provides free and confidential 24-hour access to a compassionate professional who will review your options for help, develop a plan and act as your advocate if you are faced with barriers to service. Simply dial 2-1-1 or chat with us for assistance. Se habla Espanol.

COMPASSION DELIVERED

Phone: 330-575-0996

Website: www.compassiondelivered.org Compassion Delivered provides medically tailored nutritional meals to people coping with chronic, lifethreatening illnesses and diseases.

DOWN SYNDROME ASSOCIATION OF NORTHEAST OHIO

Phone: 216-447-8763

Website: www.dsaneo.org

The Down Syndrome Association of Northeast Ohio is a nonprofit that provides support, education, advocacy, and resources for individuals with Down syndrome, their families and the community.

GREENLEAF FAMILY CENTER (DEAF AND HARD OF HEARING SERVICES)

Phone: 330-376-9494

Website: www.greenleafctr.org

Greenleaf is a nonprofit organization that strengthens families in our community through counseling, education and support. By offering a variety of programs and services, we are here to help families with the many challenges of daily living and personal crises.

Akron & Canton Special Needs Living 15
GET TO KNOW ALL WE HAVE TO OFFER! ENGAGE, EDUCATE, EMPOWER! Get connected TODAY! (234) 714-9815 mrs.hadnett@gmail.com @ Jason's Place Inc Actually, I CAN.

HELP ME GROW

Phone: 330-492-8136 Website: https://odh.ohio.gov/know-our-programs/ help-me-grow/help-me-grow

Help Me Grow is Ohio’s evidence-based parent support program that encourages early prenatal and well-baby care, as well as parenting education to promote the comprehensive health and development of children. Help Me Grow System includes Central Intake, Help Me Grow Home Visiting, and Help Me Grow Early Intervention.

OHIO’S PARENT MENTOR PROJECT

Phone: 844-382-5452 Website: www.parentmentor.osu.edu

It is the mission of the Ohio Parent Mentors to provide the necessary support and resources to families of children with disabilities and the professionals that serve them by connecting families, schools, and the community to the benefit of students with disabilities.

OHIO COALITION FOR THE EDUCATION OF CHILDREN WITH DISABILITIES

Phone: 844-382-5452 Website: www.ocecd.org

The OCECD is a statewide nonprofit organization that serves families of infants, toddlers, children, and youth with disabilities in Ohio, educators, and agencies who provide services to them.

OHIO DEPARTMENT OF MEDICAID

Phone: 800-324-8680 Website: www.medicaid.ohio.gov

The ODM provides health care coverage to more than three million Ohioans through a network of more than 165,000 providers. Learn more about Ohio’s largest state agency and the ways in which they continue to improve wellness and health outcomes for the individuals and families served at our website.

OHIO DEPT OF JOB AND FAMILY SERVICES

Phone: 800-720-9616 Website: www.jfs.ohio.gov

The Ohio Department of Job and Family Services (ODJFS) is responsible for managing many vital programs that directly affect the lives of Ohioans.

OHIO DEVELOPMENTAL DISABILITIES PLANNING COUNCIL Website: www.ddc.ohio.gov Phone: 800-766-7426

The Ohio Developmental Disabilities Council is a planning and advocacy body committed to community inclusion for people with developmental disabilities. It is the mission of the ODDC to create change that improves independence, productivity, and inclusion for people with developmental disabilities and their families in community life.

OPPORTUNITIES FOR OHIOANS WITH DISABILITIES

Phone: 800-282-4536 Website: www.ood.ohio.gov

This state agency works to empower Ohioans with disabilities through employment, disability determinations, and independence. Amoung the many services provided, OOD is responsible for establishing and maintaining partnerships with employers.

PEOPLE FIRST IN OHIO Website: www.peoplefirstohio.org

People First of Ohio is a statewide organization that works with state legislators and builds relationships with other advocacy groups and state agencies. These relationships promote better interaction among people who make decisions in the communities and the state.

PHILOMATHEON SOCIETY OF THE BLIND

Phone: 330-453-9157 Website: www.philomatheon.com

This organization is a gathering of blind and visually impaired people, along with sighted family and friends, with a mission and goal to help the blind and visually impaired in the community to help themselves to remain or to become able to live independently and an active member of their community.

16 January 2023

Have a suggestion for an important connection that could be added to this page? Email your suggestion to rick.miller@n2co.com.

PORTAGE COUNTY BOARD OF DEVELOPMENTAL DISABILITIES

Phone: (330) 297-6209 Website: www.portagedd.org

The Portage County Board of Developmental Disabilities exists to connect individuals and families with the services they need for health, safety, education and a high quality of life.

RED TREEHOUSE — RONALD MCDONALD FAMILY

Website: www.redtreehouse.org

Supporting the well-being of families and children with challenges, disabilities, and health care needs. Finding tools, organizations, and events in the community to meet the needs of families.

SHARING SOLUTIONS

Phone: 330-546-2001 Website: www.sharingsolutions.info

A community of parents/guardians of individuals from transition to adult age with Intellectual and Developmental Disabilities, professionals who serve the IDD community, caregivers, and policymakers. The focus is to provide information, support, and assistance to all. Everyone is encouraged to play an active role in sharing their resources, knowledge, and experiences.

SOCIAL SECURITY ADMINISTRATION — AKRON

Phone: 800-772-1213 Website: www.secure.ssa.gov

SOCIAL SECURITY ADMINISTRATION — CANTON Phone: 877-255-1509 Website: www.secure.ssa.gov

The Social Security Administration assigns Social Security numbers and administers the Social Security retirement, survivors, and disability insurance programs. They also administer the Supplemental Security Income program for the aged, blind and disabled.

STARK COUNTY BOARD OF DD

Phone: 330-477-5200 Website: www.starkdd.org

Stark DD connects individuals and families with the services persons with developmental disabilities need for health, safety, education and quality of life.

SUMMIT COUNTY DEVELOPMENTAL DISABILITIES BOARD

Phone: 330-634-8000 Website: www.summitdd.org

Summit DD offers early intervention programs for infants and toddlers with developmental delays, as well as transition services for students with developmental disabilities to vocational, habilitation and retirement programs for adults.

TRIAD DEAF SERVICES

Phone: 330-768-7272 Website: www.triadds.org

TRIAD Deaf Services Inc is an agency providing services to the deaf community in Stark, Carroll, and Tuscarawas Counties. They provide support services, interpreting, leadership, deaf advocacy and education.

Akron & Canton Special Needs Living 17

AFTER-SCHOOL PROGRAM

In our school age program, our children are permitted to do their homework, interact with their peers and create what interests them! Their new space was designed by them with: a karaoke stage, a lego area, a free art space, a cozy corner to chill after school and a playdough area.

18 January 2023 www.onceuponadaycare.org Ca ll TO DAY to s c hedu l e a v i s i t ! 33 0 .99 0 . 1 46 6 1033 E TURKEYFOOT LAKE RD. #100 | AKRON, OH 44312 // HOURS: Monday-Friday 6 AM to 6 PM
Call TODAY to schedule a visit! 330.990.1466 www.onceuponadaycare.org
Suppor�ng Individuals With Down Syndrome, Their Families And The Community Scan to create a "My GiGi's" account online to register for events and see what events match your interests! (330) 493-9114 canton@gigisplayhouse.org gigisplayhouse.org/canton 4061 Bradley Circle NW, Canton, Ohio 44718 Programming is always FREE! Special thanks to Paragon Accounting and Business Services & Strouble Water Hauling & Trucking, Inc. for supporting GiGi's Playhouse and for sponsoring this ad!
20 January 2023
Malinda Oakes Managing Editor Special Events Coordinator Rick Miller Owner Mike Sturdivant Content Director Dave Keller Ad Strategist / Client Services Calista Fouts Social Media Ambassador Andrea Hurr
Looking For Fun & Exciting Ways To Spend Your Day? PREMIER APPROACH IS THE PLACE FOR YOU! CALL TO SCHEDULE A TOUR! 330-312-6909 | premierapproach@gmail.com 2056 Wales Rd NE | Massillon, OH 44646 We o er a variety of community activities, all of which are chosen by participants of the program. At Premier Approach you’ll enjoy a fun, friendly & relaxed atmosphere. Get out and enjoy the things you already love, while also exploring other new and exciting opportunities. SERVICES PROVIDED: · Adult Day Support · Vocational Habilitation · Non-Medical Transportation MAGAZINE STAFF Meet the team that builds your Akron & Canton Special Needs Living magazine each month
Deborah Riley Writer

January Issue

Special Needs Parent

Sarah Heckert is currently the Director of Operations at Koala Kruizers, where she manages of the day-to-day operations of the organization. In addition to her two stepchildren, Sarah and her husband, Ryan, have adopted two daughters with Down Syndrome named Ava and Anna. She holds a Bachelor’s Degree in Special Education from Kent State University and has been incredibly active with local organizations that support Individuals with Developmental and Intellectual Disabilities, including Gigi’s Playhouse Canton, Canton Area Buddy Walk, First Christian Day Services, HandPrints Sign Choir and many more!

JOE ALBERT

Joe Albert is an expert photographer with a studio located in the heart of Downtown Canton. He has mastered the art of seeing the world through a photographer’s eye, which, as he states, means “to look for the beauty in everything.” Joe has loved getting to know his clients over the years and takes pride in having those same individuals continue to come to him for the most memorable milestones in their lives, their senior portraits, engagement photos, their wedding, and ultimately their children and family pictures. Joe loves nothing more than a good whiskey and cigar and never leaves home without his camera!

AMY WHITACRE

Middle School teacher

Amy Whitacre is a special needs educator and a lifelong resident of Stark County. She was a stayat-home mom until her children entered school. She began volunteering as a religious education teacher, where she discovered her love of working with youth in our community. After this, she received her teaching degree from Kent State University. For the past 4 and a half years, Amy has worked at The Golden Key School for Exceptional Children, where she is currently a Lead Middle School Teacher.

www.easterseals.com/noh

Easterseals has, for almost 100 years, provided services to children and adults with disabilities and special needs, and their families.

Live Adult Day Services

Home Care

Durable Medical Equipment Loan Senior Friends Shared Living Services Veterans Services Learn Make The First Five Count Information and Referral Community Education Programs Work Vocational Program

Akron & Canton Special Needs Living 21
SPECIAL NEEDS LIVING CONTRIBUTORS
Get connected TODAY! (888)325-8532
Community Inclusion Outings
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Our mission is to spread HELP, HOPE & ANSWERS!
(330) 551-3939 info@kitzmillerdesignsolutions.com | www.kitzmillerdesignsolutions.com Let's Get Started TODAY! Your Family deserves it. Design The Backyard Your Family Deserves Create a safe and functional backyard space designed by Kitzmiller The team at Kitzmiller provides the highest quality creative and functional outdoor living design and build services in Northeast Ohio. We want to help you plan your next pool, deck, or patio project. Reach out to our team to get started TODAY! Mention this ad for a FREE onsite consultation with one of our design experts.

AS UNIQUE AS THEY COME, MEET AMBER SAVAGE!

If you’ve never met a one-of-a-kind person, you can check that off your Bucket List today! Meet Amber Savage, the 26-year-old gal with a truly unique case here in the States. So unique, in fact, that the Akron Children’s Genetics Department dubs Amber with the only known case of Partial Trisomy 1 in the United States.

Of the other five cases known in the United Kingdom, Amber has the worst, however, she is doing better than the others. Because of this, Amber’s mom, Kris, says, “I give credit to God for helping her through it with all his continued work with her! He knew her and knitted her together down to the added chromosomes!”

HER CHALLENGES MEET HIS PLAN

Little is currently known about Partial Trisomy 1, but what is known are the following complications that Amber has had to deal with on her journey thus far:

• Torn labrum

• Deteriorating hip

• Extra bone spurs and arthritis

24 January 2023

• Fluid on the brain

• Stomach issues causing pain

The doctors know very little as there are very few cases. With the support of her loving younger brother (Dylan), dad (Scott), and mom (Kristina), she doesn’t let her diagnoses define her or her abilities.

Amber is an active member of Alliance Friends Church (and has been for 16 years). Her family has encouraged Amber that she can do anything she sets her mind to by the love and grace of God. His plan has had so much in store for her already: involvement with both the Ohio Miss Amazing pageant and the Princess Within pageant, attending the box car derby (where she will also race for the first time at the beginning of 2023), helping with the FROGS program, basketball clinic, Canton Challenger baseball, being a VIP for Nathan’s Hope and serving various community activities in Canton and Alliance.

AMBER’S GREATEST INSPIRATION

Kristina Savage (aka, mom) is Amber’s greatest inspiration for all her accomplishments. She’s pushed through the trials and tribulations and kept the unwavering faith Amber can aspire to share within her life. Kris has this to share about the highlights of her motherhood experience so

Akron & Canton Special Needs Living 25

far: “It’s helping Amber grow and become more involved. She’s becoming her own person and is learning so much in the process of serving and communicating with others. She loves serving the Lord and those in need. Getting started has always been easy. I like to be so involved in everything that has to do with serving and doing things that makes Amber happy. We have been in the church for 16 years, so we always got involved there. Then, I signed Amber up for Ohio Miss Amazing and from there, I learned who Amber was, and what her likes and dislikes were and ran with it!

Amber enjoys musicals, pageants and ballet the most. She enjoys being around people and grabbing their attention. Amber is such a blessing.”

The road hasn’t always been so easy. When Kris isn’t provided with answers for Amber’s symptoms, she takes the initiative to see what triggers her stomach pains and symptoms. She does the research, despite there being so little information about Amber’s condition. Kris’ road to motherhood has been a challenge, too, but so worth it!

A MOM’S ADVICE TO OTHER MOMS

Kris shares some valuable advice about what it takes to be a devoted mother: “Never give up on the one you love. Be their voice and never underestimate what their limits are or what they are capable of. Have faith and believe in their abilities for God created them for who they are supposed to be and that is the light of the world. Give them kindness and grace and understanding. Delight in their accomplishments and praise them always. God knew what HE was doing when HE gave you your child. Never let anyone tell you what they think is best for your child, for parents know best. And always be the joy in their lives, giving them something to smile about daily.”

26 January 2023
Akron & Canton Special Needs Living 27 We seek to provide every child with autism an individualized program that employs the research-based methodologies of Applied Behavior Analysis. Building Skills. Fostering Relationships. Changing Lives. AUTISM SCHOLARSHIP, MAJOR INSURANCES, AND OHIO MEDICAID PLANS ACCEPTED! AutismNowacceptingScholarship applicationsfor the2022/2023 schoolyear! 330-309-3133 www.appliedbehavioralconnections.com info@appliedbehavioralconnections.com Call TODAY to lean more! Don't Let The Cleaning Get The Better Of You Get The Better Of You Cleaning | One Time Cleaning | Emergency Cleaning | Covid or Other Illness Cleaning Other Indoor Cleaning | And More! 330-834-0008 1929 9th Street SW Massillon, Ohio 44647 info@brahlerscrr.com

Expanding Efforts For Inclusion And Accessibility!

Introducing the Akron-Canton airport Sunflower Program

There is a new program at Akron-Canton Airport that may make travel easier for those with hidden disabilities.

Akron-Canton Airport (CAK) has launched a new program to make the airport more accommodating for travelers with hidden disabilities. The Sunflower Program offers free accessories to airport guests, which discreetly indicate the wearer may need extra time or assistance while traveling through CAK.

The Sunflower Program allows travelers to self-identify that they may require additional support while passing through the airport. Sunflower Program accessories such as lanyards, pins or bracelets may be picked up at the Visitor Information Center, airline ticket counter or requested through CAK’s website ahead of travel.

“A top priority of ours is to ensure CAK is inclusive and accessible to all,” said Ren Camacho, CAK President and CEO. “The Sunflower Program is a wonderful opportunity for our airport staff and tenants to demonstrate their care and compassion to all individuals, regardless of ability. This is one more step towards making the airport experience seamless and enjoyable because everyone deserves to travel comfortably.”

Hidden disabilities include autism, chronic pain and learning difficulties; mental health conditions, mobility, and speech impairments; and sensory loss such as speech, sight loss, hearing loss or deafness. They also include respiratory

ABOUT AKRON-CANTON AIRPORT

Travelers can rest assured their journey through CAK is a safe and healthy one. As Ohio’s first airport to receive accreditation under the Airports Council International (ACI) Airport Health Accreditation Program, CAK has proven its commitment to customers by implementing cutting-edge practices and emerging technologies to ensure a clean environment for all at the airport.

Akron-Canton Airport (CAK) connects travelers to the world through nonstop and easy, one-stop flights. As Northeast Ohio’s preferred airport, CAK ensures an easy, convenient airport experience. Keep up to date on all things CAK at akroncantonairport.com.

and chronic conditions — such as diabetes and sleep disorders — when these significantly impact day-today life.

Over 150 airports participate in the program globally, including 59 airports in the United States. Other airports with nonstop service to and from CAK that recognize the program include Charlotte (CLT), Ft. Lauderdale (FLL), New Orleans (MSY), Orlando (MCO), Orlando/Sanford (SFB) and Tampa (TPA).

The Sunflower Program is voluntary, and passengers are not required to participate. In addition, participants may choose to disclose their disability on the card but do not have to. They may also note a contact name and phone number, which can be helpful if separated from their party.

Wearing a lanyard does not guarantee fast-tracking through security or any preferential treatment. Passengers are still encouraged to arrange special assistance with their airlines and the Transportation Security Administration (TSA) for TSA Cares.

TSA Cares is a helpline that provides travelers with disabilities, medical conditions and other special circumstances additional assistance during the security screening process. Travelers requiring special accommodations or concerned about the security screening process at the airport may ask a TSA officer or supervisor for a passenger support specialist who can provide on-thespot assistance.

28 January 2023 COMMUNITY IMPACT: AKRON/CANTON AIRPORT
Akron & Canton Special Needs Living 29 Pastor Ray Smith & Linda Smith WE NEED YOU! Harvestime Apostolic Temple Presents: Special Needs Benefit Dinner GET YOUR TICKETS TODAY! All Are Welcome! Saturday, April 1, 2023 5:00 PM - 8:00 PM Uniontown Community Park 3696 Apollo St. NW Uniontown, Ohio 44685 $30.00 Adult Ticket $25.00 Children 0-10 Years Door Prizes Live Auction Throughout "All proceeds go to Make'm Smile Ohio and The Princess Within" Scan The QR Code TODAY For Your Tickets! DONATIONS Are Welcome! Scan The QR Code!
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HAPPY HOLIDAYS! (WAS IT THOUGH? REALLY?)

Yes, I know it’s January, and the holidays are passed, but it’s never too late to pause and take an honest look at how your family holiday gatherings fared for each member of your immediate family.

• Stockings were hung by the chimney with care

• Tree was twinkling

• Food was prepared

• Cookies were iced and decorated

• Gifts were exchanged

• Meals were shared

• Toys were played with

• Christmas movies were watched

• Memories were made

• Major emotional meltdowns were avoided … hopefully.

For those of us with kiddos with special needs (and sensory needs), holidays can be less joyful and more overwhelming than we care to admit. We survive them, but we don’t truly enjoy them, and we’re relieved when

they’re over (and then we’re guilty because we’re relieved they’re over!). My girls are young, so I’m going to use ‘child/children/kid/kiddos’ in this article, but the concepts transcend age and very much apply to adults as well. My adult-aged brother Jay has Autism (Hi, Jaybird!), and after 35 years, our family has nearly perfected the art of including him in all aspects of life — to the extent he wants to be included, of course! But it didn’t happen overnight.

For most, holiday gatherings are outside of our normal daily routines, away from home, in tight spaces, and in rooms filled with many different faces. Sometimes there are crowds which can bring loud sounds. There are typically lots of lights, extra decorations and shiny things and toys that make noise. And don’t forget about new foods, which means new smells and new tastes and textures — that are comforting to most — but unfamiliar and maybe

even scary to others that prefer the safe predictability of their own home and routine [I’m experiencing some sensory overload myself, just typing all of this!].

Looking back and evaluating our own family holiday gatherings from 2022, we, too, have room to adjust and improve. I have collected ideas from experienced special needs families to share with you!

When special needs enter a family, dynamics change. Shifting and

32 January 2023 PARENT PERSPECTIVE: SARAH HECKERT
Musings from Sarah Heckert, a real Special Needs Mom from Stark County Did the holiday season have you feeling like Anna feels here?

sacrificing will need to occur. Holiday traditions that were familiar, peaceful, and easy might look different now. Grieve the change if you must, but humbly adjust for the betterment of your family. Create new memories that all can be a part of!

Next, I recommend truly looking closely at what the child needs in each setting. If home is the most comfortable, predictable place, perhaps consider hosting holiday gatherings at your house. The very next thing I strongly encourage families to do is to talk to the extended family. Be prepared to share specifics of what is going to work best for your family. No need to list all the

reasons why beloved long-held family traditions no longer work. Stick with advocating for what WILL work best for your family.

Last, some heartfelt advice from one contributing veteran specialneeds Mom: drink wine!

Relax. Give yourself some grace. Then give some grace to your child. Oftentimes our kids can sense our nervous tension and adopt it as their own. Take a deep breath and smile. You’re doing the best you can, and if I had to guess, you’re doing a fantastic job!

Happy New Year!

Sara

Here are some tips and tricks we have learned along the way sometimes the hard way! Other ideas are sprinkled in that might help your next family gathering to be more relaxed, cohesive and pleasant for all.

• Prepare your child ahead of time. Tell her where you are going, who is going to be there and what is going to happen. Let her know what to do if they need a break.

• The ever-trusty iPad. Have favorite movies and shows downloaded and accessible, so you don’t have to rely on Aunt Tina’s unreliable dial-up (Don’t forget the iPad charger!).

• Identify [ahead of time] a spare room or quiet place your child can go to regroup if feeling overwhelmed. Show your child this room upon arrival, so they know there is a special quiet place available just for them if needed.

• Keep a close eye on your child’s demeanor and behavior. If they start to become overstimulated, help them take a break or call it and head home. Overstimulation looks different for each child. Some become hyper and over-excited; some withdraw and become quiet or shy, while others become physically aggressive. Know your child and their triggers.

• Not on any holiday fashion lists, but noise-reducing headphones can absolutely help drown out the commotion. (Available on Amazon for less than $20.)

• Bring familiar toys, blankets and other comfort items.

• Enforce physical boundaries around your child. Shield them from 47 aunts, uncles and cousins that all want to touch and hug and kiss them. Allow them to adjust and start interacting in their own time.

• Limit time astray from routine. Be the last ones in and the first ones out. No one is going to notice or remember next year. Some kids actually do better arriving early and allowing others to arrive after your child is already acclimated and settled into the new environment. They may even enjoy being part of the welcoming committee!

• Don’t force your child to participate in activities or try new foods because somebody else wants to see if she likes it. Not the time, nor the place promise.

• Maintain their usual schedule as much as possible. If your child is used to eating familiar foods, only at the table, at 1 p.m. then pack familiar foods and allow them to sit at the table and eat at 1 p.m.! These little things can be a big deal for our kids.

• Don’t stress if your child doesn’t eat. Kids get excited and distracted. Don’t add to the day by fighting to overeat. They will not starve!

• Complete avoidance. Not typically recommended by therapists, but in this case it is 100% ok to decline an invitation!

• Traditions are allowed to be broken, and plans are allowed to change.

Akron & Canton Special Needs Living 33

A Story of How Far Love and Support Can Go

Adilene has already been through some tough battles in her 9 years here on earth, but thanks in part to her awesome parents and communities that rally around her and support her, she is thriving today.

When her mother Jessi was 26 weeks pregnant, she found out that Adilene would be born with Down Syndrome. A short time later, there were several things that were concerning found on ultrasound, and Jessi was induced a month early. Adilene was born small at 5 pounds, 5 ounces, but perfectly healthy. When she was 23 months old, she became very sick and found out immediately that she had Acute Lymphoblastic Leukemia (ALL), which is a cancer of the blood and bone marrow that affects white blood cells. ALL is a common type of childhood cancer but has been found in higher instances in children with Down Syndrome. Adilene immediately started chemo after diagnosis, spent 31 days in the hospital and the next two and a half years fighting it. She is a fighter, though, and won her battle, being in remission for over five years now!

Jessi and Adilene’s father, Fred, did not have family nearby during all this. They had to lean on each other and friends who were there to help. They also found other families going through a similar situation. Jessi’s biggest piece of advice is to seek out these other families. “There is such a great community that will understand your situation and has answers to your questions. There have been so many different or new diagnoses that Adilene has gotten, and I can go to friends that I have made and ask if anyone knows a doctor I could go to or knows something that could help, or even just sit with me and say I understand!” She says to reach out and find your “village” so that you don’t feel isolated. For the Korpis, Gigi’s Playhouse became a big part of their village, and Jessi quickly became involved in

the inner workings there and is now on the board and the volunteer coordinator.

“We have found so many outstanding individuals, and, even more importantly, we have found a number of friends!”

Jessi says that she would like everyone to know to never put limits on their kids. “If there is something that Adilene wants to do, I find a way to make it happen … I will say that saying yes to things she wants to do is not always easy, but it is always worth it in the end. Her confidence in herself is a quality I wish I had.”

The Korpis also stress the importance of communication with schools and being the number one advocate for your child. “Pressure everyone and continually push them to make your child the best they can be because they do not have limits!”

Adilene is currently in the third grade and a cheerleader with Jackson Youth Cheer and plays in the G.O.A.L. soccer league, which she absolutely loves. When her coaches focus on her, she strives! Jessi says that these activities are also

34 January 2023 YOUTH FEATURE: ADILENE KORPI

a great place for the parents and caregivers to have the opportunity to talk with friends who are with you on this journey.

Everyday, people have been a huge inspiration to the Korpis as they have been impressed with the community they didn’t realize they had; everywhere they go, they find people who are very supportive and encourage them. Jessi hopes this encourages you to be supportive and talk to people, share your story, and give a compliment because it really might be the spark or encouragement that they need at that exact moment, she says.

Akron & Canton Special Needs Living 35 Come visit our Award Winning Showroom at 950 S. Main St. - North Canton | 330.526.6009 Monday – Friday 9:00 AM – 4:00 PM Evenings & Weekends by appointment Medicaid Waiver Providers • www.jtekgroup.com • See our latest projects @jtekgroup OUR SERVICES Stairlifts – Straight and Curved Barrier Free Showers Ceiling Track Lift Systems Wheelchair Platform Lifts Walk-in Tubs & Transition Tubs Ramps (for sale or rent) Grab Bars & Handrails Pool Lifts Accessible Remodeling & Additions Interior Design for Mobility Consulting Services BRING DESIGN & STYLE TO YOUR HOME ACCESS PROJECT Experts in Accessible Remodeling and Mobility Equipment since 2011

HAMMER & NAILS — FIXING HOUSES AND CHANGING LIVES

Wheelchair ramps and more

For over 20 years, Hammer & Nails’ faith-based mission has remained the same — to fix houses and change lives. Hammer and Nails, Inc. is an ecumenical Christian nonprofit outreach organization based in Canton, Ohio, dedicated to improving the quality of life for disadvantaged Stark County homeowners through assistance with home and property

improvements. All improvements are made free of charge for the homeowner. Homeowners include the elderly, disabled, veteran, single parent, mentally and/or physically challenged, or financially burdened.

“A wheelchair ramp can change a person’s life overnight,” said Sara Handy, Community Relations for H&N. “It is a project that can be completed in a day’s work, and anyone at any skill level can contribute as a volunteer.”

The aluminum ramps H&N installs are long-lasting. They remain the property of H&N so that they can be constructed and deconstructed for several homeowners, becoming a gift that keeps on giving. However, the ramps are expensive. H&N has been blessed to receive grants to help fund them as well as other donations to offset the expense. The organization also accepts used metal ramps that people wish to donate.

In the past two years, over 500 projects have been completed, and 30 wheelchair ramps have been installed. “We are dedicated to revitalizing Stark County one home and homeowner at a time. All the work being done is in the best interest of the homeowner’s health and safety, and God remains at the forefront of everything we do. Our hope is that more individuals and groups will get involved by volunteering and/ or supporting us financially so that we can make a greater impact and help those who continue to fill our waiting list. By volunteering, you can experience firsthand why loving thy neighbor as thyself is so necessary in a time when we all just experienced what it is like to live in the shoes of a person with a disability who cannot easily go to and from their home without the right accessibility equipment in place. No one deserves

36 JANUARY NONPROFIT ORGANIZATION OF THE MONTH: HAMMER & NAILS

to be on lockdown in a home that is not safe. We want to allow people to have their forever homes that they thrive in and can easily go to and from doctors’ appointments, visit friends, and attend community events. We

are dedicated to fixing homes and changing lives!” exclaimed Handy.

Volunteering is a great way to support H&N and see firsthand the importance of neighbors serving neighbors. Monetary donations are equally crucial to purchase the materials needed and operating the organization. Every gift counts and stays local. This is one of the most cost-effective ways to make a big difference, Handy added.

Recently, H&N received a grant from the Health Foundation of Greater Massillon, allowing H&N to purchase a brand-new wheelchair ramp from JTEK Solutions group. The ramp was installed by a group of volunteers at a home in Massillon for a wheelchair-bound woman who lived with her husband. Her husband desperately wanted to easily take her to and from doctors and appointments but, even more so, to take her to get her hair done. H&N even had a group of Jackson High School students help plant a donation of flowers from Geissinger’s Plant Hut around the ramp. Not only was the ramp installed for a deserving family, but it was also in memory of the daughter

they lost in a tragic car accident. This project became so much more than just a ramp.

“Unfortunately, Jerri Helmreich passed away this year, but we will always have the memories made from that experience, and the ramp is now helping another homeowner and creating new memories as its legacy lives on,” Handy said.

“Hammer & Nails is a godsend that changed a person’s life overnight,” stated Jerri’s husband, George Helmreich.

H&N has four staff members and a handful of regular volunteers, and a list of other individuals and group volunteers who can be called upon at any given time.

More information can be found at www.hammerandnails.org or by calling 330-453-6277. Hammer and Nails, Inc. is located at 1404 7th St., NW. in Canton.

Akron & Canton Special Needs Living 37
Hammer
&
Nails is a godsend that changed a person’s life overnight

TWi West (A) (7891 Hills & Dales NW, Massillon)

Take

ForTWissimo (B.1) (2912 Whipple Ave NW, Canton)

TWi’s place for music! Sing your heart out in our recording studio, choreograph new moves in our dance room, break a sweat in cardio drumming, or compose the next big hit in our instrument labs!

FUSE (B.2) (2912 Whipple Ave NW, Canton)

Life skills, self-advocacy, self-determination, healthy living, social skills. Independence grows when we FUSE together all of our skills! Explore and engage in your community through regular, small-group, excursions focused on empowerment and skill growth.

Just Imagine (C) (Canton Arts District, 201 6th St NW)

Explore your creative side! Artists in our program are offered opportunities to experiment with new art mediums, grow their skills and learn new techniques from professional artists.

38 January 2023
All To Soar Nurturing skills that foster independence and empower ALL to live their best lives! Services Include: · Adult Day Support · Vocational Habilitation · Group Employment Support · Individual Employment Support · Homemaker Personal Care · Non-Medical Transportation We Have Opportunities Just For You All Over The Neighborhood!
Empowering
part in recreational and leisure activities, or explore your career interests through vocational habilitation activities. Visit Our Website To Learn More: ChooseTWi.com
330-479-3958 Information@ChooseTWi.com

A Living Example That Hard Work Always Pays Off

Paul Gines has worked at the Marc’s in North Canton for nearly two years. Since his employment began, Paul has been responsible for maintaining the grocery carts. This job includes collecting them from the parking lot and placing them in rows inside the cart area. Paul is very particular and likes to ensure that the rows he makes are perfect. More recently, Paul has been able to add to his job responsibilities and has taken on the task of stocking frozen and refrigerated foods.

Paul has developed a great relationship with his job coach, Lori, from TWi. Lori describes Paul as kindhearted, hard-working, dedicated and a perfectionist.

Lori checks in with Paul twice a month and is there to support him when he needs assistance. Paul is able to talk to Lori when he is frustrated, and she is able to help him work through any issues. Recently, Paul approached Lori about helping him speak with his supervisor about adding to his job responsibilities.

Lori and Paul spoke about how to best approach his manager to advocate for himself and a change in his responsibilities. After speaking with his manager, using the tools and suggestions given to him by Lori, Paul’s manager agreed to add stocking to his job duties.

Prior to working at Marc’s, Paul held a variety of positions, including Chili’s, Bob Evans, Toys R Us and Walsh University. Paul worked with TWi and Opportunities for Ohioans with Disabilities for his work training and job development. They helped him find his current position with Marcs, which has been a great fit! Paul’s favorite things about Marc’s include stocking, his coworkers, and getting to see his girlfriend at work. One area where Paul sometimes struggles is when customers leave carts all over where they’re not supposed to be. This is something that is challenging for him and leads to feelings of frustration, but it is also something that he is working on. Most of the time he tries to stay positive and smile. One suggestion his job coach, Lori, gave him for days when he is feeling frustrated is to try and make at least three people smile. This has been a helpful tool in turning his day around when Paul is feeling frustrated, as Paul has found it feels good to make others feel good as well. One of Paul’s strengths is that he is open to feedback and suggestions from others.

When this outgoing and friendly guy isn’t at work, he enjoys going out to Subway, Taco Bell and spending his money on video games from The Exchange. He also enjoys going to the library, comics and Dragonball Z.

Akron & Canton Special Needs Living 39 COMMUNITY EMPLOYMENT SUCCESS STORY: PAUL GINES

EMPOWERING ALL TO SOAR

Introducing you to TWi

TWi was founded in 1968 with the purpose of securing, providing and promoting training, work opportunities and job placement for local adults with developmental disabilities. Fifty-four years later, the organization continues to abide by this purpose. Over the years, service offerings have been expanded to support individuals with disabilities in all aspects of life, making independence and employment a more obtainable goal.

Many of those served by TWi started off by participating in vocational training and are now independently employed. The organization’s goal is to empower each person to progress through their employment journey by focusing on their strengths and by connecting them with the right opportunities. TWi offers tiers of employment services — vocational training, group employment and individual employment.

Vocational training exposes participants to a variety of

employment opportunities and functions. Through vocational training, folks learn skills necessary for the workforce while earning an income. Through partnerships with local businesses, group employment provides adults with developmental disabilities the opportunity to work in a community setting while further developing work skills. TWi transports folks to and from their workplace and supervises them throughout the day. Many adults with developmental disabilities work in the community or want to work in the community. For those working, TWi provides job coaching from a workforce consultant on a regular basis to empower folks to maintain or grow in their current place of employment.

TWi was operated by Stark DD until 2018. In 2018, TWi became an independent nonprofit organization based in Stark County. The organization serves nearly 400 local individuals with developmental disabilities

each year, has 100 staff, and employs over 250 individuals with developmental disabilities. The organization provides labor services to businesses and nonprofits, as well as a range of training and enrichment programs for the individuals in its programs. TWi currently operates two-day service locations within Stark County in addition to an art studio. Additionally, TWi partners with local businesses to provide labor services, including production and assembly,

40 January 2023 JANUARY SPONSOR OF THE MONTH: THE WORKSHOP, INC.

food services, document destruction, landscaping and janitorial services.

“We empower people to achieve more by providing a range of opportunities, backed by the resources they need to succeed, including training, encouragement, expertise and personal attention,” said Rachel Doty, marketing manager at TWi.

Day services involve providing adults with a safe environment where

they can interact with others and gain vocational habilitation and preemployment skills. In employment services, participants build work skills through individual or group employment with local organizations. They gain experience from qualified supervisors in a variety of work types and earn a paycheck.

“As an organization, we excel at employment,” Doty added. “We bring

people together, uniting individual dreams with the practical needs of today’s employers. By integrating capable, diligent participants into workplaces and public spaces, we’re strengthening businesses and the community.”

TWi is always looking for new partners and employment opportunities for the individuals it serves. With TWi as a partner, businesses receive reliable, highquality management of jobs and tasks while also creating jobs for local adults with developmental disabilities. TWi’s business services include janitorial, lawn maintenance, document destruction, production and assembly and food services.

For individuals with developmental disabilities seeking employment, TWi is currently hiring for a number of positions. Those interested in working for TWi should first contact their SSA and request an interview with TWi.

For more information, please visit www.ChooseTWi.com or call 330479-3958. TWi is located at 4065

Akron & Canton Special Needs Living 41
42 January 2023 Sharing Solutions IDD Support Group for Families, Caregivers & Professionals 5:00p - Social Hour | 6:00p - Meeting Walthers Twin Tavern | 430 Applegrove St NW | North Canton, OH Contact us TODAY to RSVP for the next meeting and receive email reminders! jodi@sharingsolutions.info Follow Us On Facebook! Next Group Meeting: February 15th March 14th Employment Opportunities MARK YOUR CALENDARS Before arriving check the Sharing Solutions Facebook page for cancellations. We offer high quality, researched based, instruction for students with disabilities in grades 3-12+ with a focus on vocational skill education. SERVICES INCLUDE: On-Site Educational Services BCBA, COBA Services Off-Site Intervention Services IEP Writing and Compliance Professional Development Comprehensive ESY Program Call to learn more! 234-678-9622 bhazelett@redlineadvocacy.com 3503 Fortuna Drive Akron, Ohio 44312 www.redlineadvocacy.com Where Every Ability is Celebrated 330-966-7226 | www.brightmindsla.com | brightmind111@gmail.com 5368 Fulton Dr. NW, Canton, OH 44646 SERVICES • ACT/SAT Prep • Math Enrichment • Creative Writing • Comprehensive Reading • Complete Homework Support • Pre School Learning (ages 3-5) • Spanish Tutoring • Science • Sharpen Study Skills Now offering classes in Akron, Ohio, also! MENTION THIS AD TO RECIEVE $20 OFF EXPIRES 02/02/23 Offering Homework Help Everyday! Get Good Grades With We Offer: Personalized Learning Plan (PLP)
Akron & Canton Special Needs Living 43 Job Development Job Coaching Community Based Assessments Career Exploration Follow Along Services Travel Training Ohio Employment First Program ENRICHING LIVES THROUGH EMPLOYMENT Contact us TODAY to learn more: 330-388-5778 independentemploy.com malcolm@independentemploy.com VOLUNTEER TODAY!

A Young Man That is Truly One in a Million!

An inspiration who goes by the name of Elliot Smith

extra therapies they can get, such as OT, PT, speech and feeding. On top of all of this, Elliott was also diagnosed with Autism at age 2. The biggest struggle for Amanda and Elliott is that he looks like every other child, and when people can’t see that a child is “different,” they expect them to behave as other kids their age do.

Amanda would like other parents of children who have an “invisible illness” to know that they are still seen and still heard. “We’ve been given these children because we are the right people to fight for them,” she says. “No matter what obstacles come, special needs parents are resilient in fighting the battles that need to be won, and I am proud to be a part of such an amazing community.”

After Elliott was born 4 years ago prematurely due to his mom’s preeclampsia, he spent 23 days in the NICU, where it was discovered that he tested positive for PKU on his newborn screen. PKU is a rare and incurable birth defect that causes an amino acid called Phenylalanine to build up in the body, which is toxic and, if not treated, can cause intellectual and developmental disabilities. The chances of your child receiving this diagnosis are less than 1 in a million! Fortunately, they found out Elliott had a mild case and didn’t need medications or a specialty formula.

The Smiths continued to have appointments with geneticists and some further genetic testing. They found that Elliott had 2 mutations of “uncertain significance” on his DNAJC12 gene and had multiple other tests done to determine the best course of action for Elliott. They also discovered that during a BH4 loading

test, Elliott was one that responded exceedingly well to the medication they gave him during that test, which meant he would continue to respond well to it, so the medication was started then.

They had appointments with neurology and also found out that he had low levels of serotonin and dopamine in his cerebral spinal fluid, so he was started on medications for that as well. Elliott’s mom Amanda says, “Though we know very little about the implications of his diagnosis, we do know early intervention can help tremendously, and so we started him with everything available to us.”

They have yet to meet anyone else that has the same diagnosis as Elliott, but they don’t let that stop them or discourage them. Amanda says that they take advantage of many services for him: Help me Grow, Triple P Program through the Family Child Learning Center, and all the

44 January 2023 INSPIRATIONAL PERSPECTIVE: ELLIOT SMITH

Currently, Elliott is attending a developmental preschool program at Greenwood Early Learning Center in Green. He loves water and swimming, so they have him in swim lessons so he can understand water safety and his parents can enjoy it with him without as much fear. They love seeing how happy and excited he is every time he gets in the water and hope that swimming will be a long-term hobby for him. He also wants to be Spider-Man when he grows up.

Receiving diagnoses like Elliott’s could really get you down, but the Smiths have found ways to stay positive, and hopefully, other people feeling discouraged can find encouragement in Elliott’s story. Amanda says, “Elliott himself is an inspiration to me. He endures a lot and can’t always understand the why of things happening, but he stays a happy and smiling boy through so much of it and constantly has his providers laughing from his silly and good-natured personality.”

Akron & Canton Special Needs Living 45

SPREADING THE SPARTAN SPIRIT THROUGHOUT SCHOOL AND BEYOND!

Springfield Sparkles inclusive cheer team

Rah! Rah! Rah! Springfield Local School District in Akron brings on the heat with their special needs inclusive cheer team — the Springfield Sparkles Inclusive Cheer Team. Any K-12 student receiving special needs education services in the district can join in the high school cheerleading fun and root alongside the Springfield High School Varsity and Junior Varsity cheerleading team!

SPRINGFIELD SPARKLES SPREADING SPARTAN SPIRIT

The Springfield Sparkles Inclusive Cheer Team began in the fall season of 2009-’10 to help mentor anyone receiving special needs education services from kindergarten to 12th grade (or age 22) to participate in high school cheerleading. Each member has a Sparkle Buddy to coach them throughout the school year, encouraging boys and girls alike to spread cheer. Their hope is that the spirit will spread not only to other students but beyond the bounds of school and enter into homes, workplaces and the community around them!

Their team is made up of boys and girls with a variety of diagnoses and abilities and coaches who encourage everyone to cheer on the Spartans! The coaches also ensure every cheerleader is comfortable while actively participating in cheering on their athletes.

ADAPTING CHEERS AND DANCES FOR ALL MEMBERS

The Springfield Sparkles bring their A-game to make every game day, community event and exhibition are inclusive for all its members! They do this by adapting their cheers and dances so everyone has an opportunity to bring the spirit to the crowd. One way they’ve accomplished this is by providing picture booklets to show the kids how to perform the moves. It’s been an absolute game changer, having a visual aid as they imitate the moves. This method has reinforced the moves in a way that helps the kids better remember routines!

Another way they’ve kept inclusion at their center is by adapting other ways to include members. For instance,

they’ve acquired a tricycle for one of their students. He performs by riding the tricycle with the Sparkle flag attached to the bike. The crowd goes wild! Another student uses a communication device to talk with teammates and start cheers and chants!

SPARKLES SHOW THAT BEING DIFFERENT IS BEAUTIFUL

The Sparkle team cheers at all home varsity football and junior varsity basketball games, having incredible support from the Springfield High School Varsity and Junior Varsity cheerleaders. These cheerleaders have developed friendships with the Sparkle team, as well as witnessing major progress!

Here’s the impact this squad has had on high school senior Malachi: “I recently witnessed a moment with one of our senior male cheerleaders that made everything seem right in the world at that very moment. It was as if time had stopped. Malachi attended the Homecoming Bonfire, where all senior fall athletes were recognized. Despite Malachi having a hearing impairment, Malachi relies

46 January 2023 COMMUNITY ORGANIZATION: SPRINGFIELD SPARKLES

on sign language and picture cards to communicate during cheerleading events. But during the bonfire, when all athletes gathered around the fire to sing our Alma Mater, it was the first

time that I saw Malachi independently join in; a football player put his arm around Malachi as they both swayed back to the rhythm of our Alma Mater. It was truly a moment in time that I will never forget, he felt like “one of the boys.” This was truly an inclusive moment and the reason that we spread awareness. His grandmother witnessed it at the same time that I did, and it brought tears to her eyes. Inclusion wins!” — Terry K.

The school district is being impacted by the Sparkles every day. In 2018, one of the Sparkles’ former cheerleaders won the title of Homecoming Queen! She’s now a volunteer coach for the Sparkles, helping support this organization that has been thriving for the last 12 years.

SUPPORT THE SPARKLES AT THEIR SPIRIT SPARK-TACULAR SHOWCASE

The Springfield Sparkles Inclusive Cheer Team has supported so many different events and organizations these last few years. They’ve helped support the Summit and Stark County Autism Walks — raising awareness about Autism Spectrum Disorder — and The Buddy Walk — raising awareness about Down Syndrome. In 2017, they partnered up with the Cleveland Cavaliers Spirit Squad, dance squad and their hip-hop dancers, The Scream Team.

With all the change they spark in the community, we can help support the Sparkles with their cause! Join in supporting the Sparkles at their annual event dubbed the “Spirit Spark-tacular Showcase” on Feb. 25, 2023. Special needs and inclusive dance teams from all over Northeast Ohio come to this event, where funds and donations are accepted to help purchase adapted equipment, uniforms and more for their team members!

“I would also like to encourage all districts to develop inclusive teams or clubs spreading inclusion and opportunities for students with different abilities,” says Terry Kyser from the Springfield Sparkles Inclusive Cheer Team. “Make a difference! Volunteer to start something within your district, talk to your

Special Education Directors and Superintendents; it is such a positive experience for the community as well.”

Join us for their Spirit Spark-tacular Showcase event on Feb. 25, 2023, to support and celebrate the Sparkles, and follow us on Facebook (@snl. cak) for updates on this event and so much more!

Akron & Canton Special Needs Living 47
Akron & Canton Special Needs Living 49 Call Richard Corns TODAY for more information! office: 234-714-2300 cell: 330-413-6986 That's why we insure them! CHOOSE THE COVERAGE THAT MEETS YOUR NEEDS: Personal Mobility Device Coverage Covers you anywhere on or off the road for: • Bodily Injury • Property Damage • Collision • Medical Payments • Uninsured Motorist • Underinsured Motorist • Comprehensive Equipment Breakdown Coverage Available for home, condo, or renters and covers mobility devices and motorized chair lifts from mechanical breakdown, electrical breakdown, or power surge. WE KNOW HOW ESSENTIAL YOUR PERSONAL MOBILITY DEVICES ARE TO YOUR LIFE Listen To Your Body, Strengthen Your Mind WE SUPPORT HEALING THROUGH MENTAL HEALTH COUNSELING, YOGA, ART THERAPY, EDUCATIONAL WORKSHOPS, AND MORE! CALL TODAY! STOP the STIGMA! 330-426-7885 Carve Your Own Path, Inc. | 840 Rothrock Rd, Suite 203, Copley, OH 44321 | Landscaping for supporting Carve Your Own Path, Inc. and sponsoring this ad.
50 January 2023

Question: Where do you work currently?

Answer: The Golden Key School for Exceptional Children

Question: What is your job title here?

Answer: Lead Middle School Teacher

Question: How long have you been employed with your current job?

Answer: 4 ½ years

Question: How long have you been employed in this industry?

Answer: 10 Years

Question: What were your previous jobs in the industry?

Answer: I have been a part of the educational industry for about ten years. I first started as a substitute teacher for various districts, then evolved into a special needs teacher.

Question: What do your day-to-day job responsibilities include?

Answer: My responsibility as a special needs teacher in Ohio is to implement the state learning standards and provide appropriate accommodations and modifications to meet the individual academic needs of my students. This is accomplished by providing a supportive and effective learning environment with the resources my students need to succeed.

Question: What is the inspiration behind why you work in this field?

Answer: I worked in the corporate world for years, feeling unfulfilled until I was given the opportunity to break into the educational field through a job opening to fill in for teachers on

Question and Answer session with Amy Whitacre

Lead middle school teacher at The Golden Key School for exceptional children

leave. The first time I worked with an autistic child, I made a connection that others struggled to make. I was able to break through the learning challenges by utilizing patience, gaining trust and trying different communication strategies. I can say from that moment on, being a special needs teacher has become my passion.

Question: What part of your job are you most passionate about?

Answer: I am most passionate about helping my students reach their highest potential. As an educator, we are always learning, training, and researching educational materials to help us grow in our profession. With that being said, I have to admit that my greatest educator happens to be my students. They have taught me the most valuable lessons about patience, compassion, endurance, competence, acceptance and love.

Question: What advice would you give to someone new to your field?

Answer: Enjoy the time you have with your students by making learning a positive experience. It’s ok to be playful, be silly and laugh when you can. Show your students that you care about them and are proud of them. Remember to be flexible in your teaching styles while keeping realistic expectations, and last but not least, always assume competence.

Question: What is your favorite success story you have seen?

Answer: It’s the beautiful moment when a student with significant social and communication challenges forms

new friendships by using the social thinking skills they have learned in your classroom, the pride that washes over my students when they realize all of their hard work paid off and they have mastered a new concept and the simple joy of watching them walk into class first thing in the morning with a smile on their face because they are excited to come to school. It’s all that and so much more.

Question: What advice would you give to help parents navigate your field?

Answer: Be a tenacious advocate for your child, and teach your child to be their own advocate. Help them learn to communicate their needs with others by using any tools that will allow them to be heard.

Question: Where do you see your industry going moving forward?

Answer: I can see the Golden Key School embracing the future as an Industry leader in the world of Autism. I cannot express to you how much passion and dedication this organization has poured and continues to pour into this very important cause. I am proud to be a Golden Key Warrior!

Question: What has been the biggest factor in your career success?

Answer: The administration here at the Golden Key School for Exceptional Children has been the biggest factor in my career success. From the moment I signed on to be a lead teacher, they have gone above and beyond to provide support, training and continued education to aid in my success as a special needs teacher.

Akron & Canton Special Needs Living 51 COMMUNITY IMPACT Q&A: AMY WHITACRE

DEVELOPMENTAL SERVICES

52 January 2023

COFFEE WITH A PURPOSE will feature a fun-filled evening with auctions, raffles and so much more! Whole Latte Love Café is raising funds to expand our services and continue providing competitive employment support for people with disabilities. This expansion effort, called WHOLE COMMUNITY, will offer a public rentable conference room, complete with a coffee cart option, as well as an extension of our retail shop and a training room equipped to address individual employment goals.

We would love to have you and your business or company be a part of this new opportunity by partnering to purchase an advertising sponsorship Please see us at the front counter or contact 234-360-2233 or info@wholelattelovecafe.org for more information. We would be happy to answer any questions you may have.

Stop by, you'll be glad you did! M-F 8:30am – 4:00pm | Sat. 8:30am – 2:30pm 1308 South Main St. • North Canton, OH 44720 cafe@wholelattelovecafe.org 234-360-CAFE (2233)

ad!

Akron & Canton Special Needs Living 53
Special thanks to Charis Homes and Stark Flavor for supporting Whole Latte Love Cafe and for sponsoring this

FINAL TAKE

54 January 2023 January issue photo finish
PHOTOS CAREFULLY SELECTED BY MIKE STURDIVANT Pictures Say Thousands of Words … about Ian Alaniz Inspirational Perspective: Elliot Smith Nonprofit Spotlight: Hammer & Nails Sponsor Spotlight: The Workshop Inc. Youth Feature: Adilene Korpi The Amazing Amber Savage Parent Perspective: Sarah Heckert

Wings of Change Therapy, Inc. provides therapeutic day programming for youth between the ages of 5 and 21.

Our therapeutic day program provides educational and therapeutic services to children of all ability levels. The licensed therapists work alongside the intervention specialists within the classrooms and provide individual therapy.

Akron & Canton Special Needs Living 55 Therapeutic Day Center Combining Academics & Therapies for a Collaborative Approach Changing The World, One Child At A Time Changing The World, One Child At A Time Spots are filling quickly! Enroll Now for the 2022-2023 Academic Year! Autism Scholarship Providers 234-334-0044 • jordye@wingsofchangetherapyinc.com www.wingsofchangetherapyinc.com Meet Waffles the Therapy Dog! OUR TEAM INCLUDES: - Intervention Specialists - Occupational Therapists - Physical Therapist - Speech and Language Pathologists - Direct Support Professionals
5051 New Centre Dr Wilmington, NC 28403
A Social Publication for the Residents of Akron & Canton

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