`
` Lumea
Therapeutic Memoirs
“It is not the length of life, but the depth of life.� Ralph Waldo Emerson
Carissa Lo
Terminally Ill Patients by Carissa Lo Parsons School for Design Professor Robert Rabinovitz
In three words I can sum up everything I’ve learned about life. It goes on. Robert Frost
Content
- Introduction .................................................. - History of Hospice - Research ......................................................
Phase 1
- Understanding the Problem - Problem - Vital Statistic - Understanding the Patients - Mental - Physical - Belief - Existing Products - Research ...................................................... Phase 2 - Understanding Patient Analysis - Senses - Daily Routine - Intent ............................................................ Phase 1 - Intial Criteria - Concepts - Models - In Field Research .........................................
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- Design Direction ........................................... Phase 2 - Revised Criteria - Inspiration - Concepts -Models
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- Design Direction ........................................... Phase 3 -Concept 1: Snowflake - Model - Application - Concept 2: Finger Knitting - Model - Application - Concept 3: Butterfly - Model 1 - Application 1 - Model 2 - Application 2 - Final Product ................................................ - Lumea - Meaning of Lumea and Concept - Materials - Views - Various Age Group Scenarios - Technical Rendering and Exploded Views - User Scenario - Resources - Bibilography
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Carissa Lo Lumea- Terminally Ill Patients by Carissa Lo
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Parsons School for Design Professor Robert Rabinovitz
Introduction
History of the Hospice
“Hospice” a linguistic root for “hospitality” During the medieval times hospice was referred to a place of shelter and rest for the weary or ill travelers on a long journey. In 1967 a physician Madame Cicely Saunders founded the first modern hospice center called St. Christopher’s Hospice in a residential suburb of London. She introduced the idea of specialized care for the dying in the United States in 1963.
Phase 1
Research
Understanding the Problem Problem
Vital Statistics
Many of terminal patients are forced to live in nursing homes, residential hospices, or hospitals due to the variety of help needed for their specific conditions including cancer, pulmonary, cardiac, and neurological diseases.
There are at least over one million patients that are diagnosed as terminally ill in the US of 2006.
Due to a lack of proper diagnosis from physicians, the solution for a terminally ill patients maybe to either hasten death or improper treatment for the patients. Many physicians do not seem to understand that keeping patients in the hospital for a prolonged period of time will lead to a decline in the patient’s mental state.
At least 15% of terminal patients die within 7 days, with an average hospital stay being 29 days.
At least 80% of US patients die in institutions from medical treatment. Most of these deaths occur among adults from 65 to 85 years of age.
Carissa Lo Lumea- Terminally Ill Patients by Carissa Lo
Parsons School for Design Professor Robert Rabinovitz
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Understanding the Patient Mental Negative
Positive
Psychologically these patients may face a variety of emotions due to their fatal conditions.
To alleviate some of the mental stress, there are many enjoyable activities that can promote a better quality of life.
- Distress - Depression - Burden - Denial - Helplessness - Guilt - Shame - Feelings of unfulfillment - Abandonment/ leaving too soon - Anger - Sadness - Frustration - Attachment/ being separated - Sense of Danger - Anxieties - Regrets
- Meditation - Music - Dance - Theater - Art - Events/ Festivals - Sports/ Games - Amusement Parks - Singing/Chants - Concerts - Eating/ Food
Hanging out with friends, spending time with family, cultivating relationships through patience, love, compassion, and wisdom, creating a cause for a future of happiness, eliminate any final regrets, attainment of the world, and taking day trips can lead to a satisfying life.
Understanding the Patient Physical There is a concern for the patients level of consciousness, range of movement and the duration of time.
Mike is in his mid twenties and is single. He was diagnosed
with Leukemia and his life expectancy is 2 weeks. He lives and works in the city on his own. His parents live in Europe and visit once in a while. Since his diagnoses he has been bed ridden and his energy is diminishing. From time to time he has a shortness of breathe and is limited in the range of movement. Due to the distance of where his parents live it is difficult to reach him to visit at the hospice. 2 Weeks
Jane is thirty years of age and has a husband and two kids.
She was diagnosed with cancer and has 3 months to live. Her and her family live in the suburbs close to the hospital facilites. She is a very energetic person but due to the treatment she is on, to deter the illness, she has become very woren at times. At times she experiences pain and uneasy due to the medication. Her family is very supportive of her and encourage her to stay strong throughout the process. 3 Month
Frank is a senior citizen at his prime age of sixty-five. He
Minor Cases - Counseling - Support Groups - Foundations - Charities - Wheelchair Severe Cases - Need constant attention - Facilities to be close by - Equipment if necessary - Therapy - Limited Range of movement - Possiblity of Bed ridden - Physically debilitating Patients can have emotional conflicts because of a strained relationship between them and their loved ones. Loved ones may also have to deal with the after effects of the patients passing away.
has a loving wife, two kids and three grandchildren. A couple weeks ago he was notified that he was diagnosed with a pulmonary heart condition. The doctors told him that he has a year to live. He resides now at a retirement home with a large loving family that visits him on occasions. He is very active even though his moblity is hindered a bit due to being handicap from a stroke a couple months ago. 1 Year Carissa Lo Lumea- Terminally Ill Patients by Carissa Lo
Parsons School for Design Professor Robert Rabinovitz
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Understanding the Patient Belief There are many different belief systems that are across the world. Many people surround themselves with spritual objects to comfort them. Some of these objects are the bible, a rosary, prayer cards and pictures of saints. By engaging in reading prayer cards or the bible their hopes and questions can be answered by a higher being, god.
Christianity Other religions that are mainly celebrated in Eastern Culture is buddhism. Some forms of activies that they perform help them to relax or set the mind at ease. These activies include worshipping deities bringing them offerings or sacrfices, meditation, or simply by celebrating in a festive way.
Buddhism Another sect of relgion or belief people come together for is by chanting or reading hymns out loud. It releases any bad spirits one might have and bring in good energy.
Judism
Existing Products Eastern Culture
Western Culture
Letter
Diaries and Journals
Scrap Booking
Monument
Scrolls
Temples/Shrines
Sacred Text
Playing Instrument
Collecting Stamps
Bible and Rosary
Deities
Rituals/Ceremonies
Calendars
Symbolism
Books
Puzzles
Music
Mummification
Chants/hymns
Processions
Will
Knitting
Quilting
Offerings
Pottery
Jewelry
* Note: Two Color Scheme represent the setting of the tone in different cultures
Carissa Lo Lumea- Terminally Ill Patients by Carissa Lo
Parsons School for Design Professor Robert Rabinovitz
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Birth
Graduation
Maintenance
Traveling
- Touch - Discovery - Explore - Food - Parents
- Photos - Friends - Yearbook - Family - Movies
- Bathing - Spa - Eating - Sleeping - Massage
- Books - Magazine - Music - Car Games - Newspaper
Children
Marriage
Vacation
Animals
- Sports - Growth - Family -Family Album - Storytime - Parents
- Planning - Relationships - Honeymoon - Vacation - Anniversary -Gifts
- Hiking - Spa - Cruise - Photo -Camera - Books
- Spider - Web - Butterfly - Metamorphis - Bird - Songs
Holiday
Birthday
Nature
- Friends - Cards - Food - Music - Family
- Photos - Presents - Friends
- Plants - Maze/ Labyrinth - Solar System -Planitarium - Trees - Growth Rings
Phase 2
Research
Understanding Patient Analysis
Senses - Touch - Smell - Taste - Hear - See
Senses of the human body are to be applied when a person encounters different experiences. By focusing on each of the sense it will enhance their awarness of their surroundings.
Hand
Nose
Mouth
Ear
Eyes
Carissa Lo Lumea- Terminally Ill Patients by Carissa Lo
Parsons School for Design Professor Robert Rabinovitz
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Daily Routine Morning
Afternoon
Night
Exercsing
Bedsheets
Reading
Meditation
Cooking
Laundry
Mailbox
Tea/ Cafe
Hiking
Pajamas
Food
Towels/Linens
Food
Music
Bath/Massage
Phase 1
Intent
Intial Criteria To create a product that is memorable and a keepsake so that the patient will have something physical to hold To perpetuate core value and life experiences with loved ones, friends, family, and even pets To inspire reminiscing of treasured memories that creates a sense of nostalgia
Joy
Excitement
Laughter
Love
Carissa Lo Lumea- Terminally Ill Patients by Carissa Lo
Parsons School for Design Professor Robert Rabinovitz
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Concepts
Electronic Bracelet
Toy Doll
Picture Ring
HomeAroma Wand
Photo Keychain
Toy doll
Picture Ring
HomeAroma Wand
Photo Keychain
Models
Electronic Bracelet
In Field Research
Cabrini Hospice Center, New York City
What would patients like to leave behind before they pass away? A legacy. At the end of the patients life what is lacking from from life? A constant need for movement or motion. Due to being bed ridden or restricted movement it is harder for the patients to keep working or set goals due to end of their life. What is the most essential or special when family members come to visit the patients? Most important part is the sense of touch. Holding hands with the patients can be very calming and soothing to a person and also having conversations. What does Cabrini Hospice Center offer through their facilities? The hospice center has staff that offers patients and family members to talk to them. After the patients pass away the community follows up after a couple weeks to a month to see if the family member is doing well. The facility offers a meditation room, music room, and a cozy living room. What kind of atmosphere and environment is created for the patients and family members in the hospice center? When walking into the hospice center the atmosphere is very calming, soothing, and relaxing. The color of the walls are a lavender pastel tone and is decoratesd with wall unit water fountains and beautiful art pictures/paintings. The mood of the overall place is set with warm, soft, and dim lighting which is easier for the eyes and plants and placed throughout the facilities to create a livelier environment. What types of therapies does Cabrini Hospice Center offer here? We offer Art therapy and Hand therapy mainly. With hand therapy a special high luxury end company has donated a few bottles to the hospice center for therapeutic reasons.
Carissa Lo Lumea- Terminally Ill Patients by Carissa Lo
Parsons School for Design Professor Robert Rabinovitz
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Inspiration To create a product that overcomes the stages of Dying, Death, and Grief To convey the present moment and the vibrancy of life To engage a loved ones in events by focusing on physical activies
Phase 2
Design Direction
Revised Criteria
To form a depth of life and layered of meanings
There is a need for a product or system to help these patients transition into their next stage of lives. Patients need to feel a sense of life long fulfillment and satisfaction in the small duration of time they have left.
+ Books + Letters/ Journal + Daily Activities - Photos
Existing solutions for these patients include medical treatment,psychotherapy, and support groups. Some of them seem quite helpful, but many, including foundations and charities, leave these patients in the same or worse conditions and do not really grasp the core values and essence of life. + Spending time with loved ones - Medicine - Charities * Note: Symbols for Positive + and Negative -
Concepts
Hand Motion Plant
Finger Cacoon
Goal Inspired Flashcards
Finger Cacoon
Goal Inspired Flashcards
Models
Hand Motion Plant
Carissa Lo Lumea- Terminally Ill Patients by Carissa Lo
Parsons School for Design Professor Robert Rabinovitz
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Phase 3
Design Direction
Concept 1: Snowflake
Inspiration: Snowflake
Dimensioned Snowflake
Patterned Snowflake
Flake Pendant Model
Phase 3
Design Direction
Concept 2: Finger Knitting
Inspiration: Fingers
Fingers and Hands
Dimensioned Yarnball
Book Model
Carissa Lo Lumea- Terminally Ill Patients by Carissa Lo
Parsons School for Design Professor Robert Rabinovitz
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Phase 3
Design Direction
Concept 3: Butterfly
Inspiration: Butterfly
Top View
Option of handel
Side View
Option of handel
Butterfly Model
Final Product
Lumea
Inspiration: Relaxation
Pendant Color Features
Photo Magnet
Tracking connection
Ring Detail
Carissa Lo Lumea- Terminally Ill Patients by Carissa Lo
Parsons School for Design Professor Robert Rabinovitz
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Meaning of Lumea and Concept
Lumea is in reference to the Moon Goddess Luna. She symbolizes protection of the skys above. On a specific day there is a ritual in rememberance for the goddess. By incorporating a sense of tradition in the product it will give more cultural meaning.
Moon Phases represents the cycle of change of time. The mechanism part of the product picture and the ring rotates on a track in a circular motion. The Sky display the infinate and timelessness of the vast space. The objective of the product is to create a sense of value and sacredness in the product experience when in use. The Stars represent a belief of wishes. Also star formation and cluster of stars connect to a bigger picture for instance constellations. Giving the consumer a chance to use the product it can create a sense of connection or link forming a relationship.
Materials
Plastic Pellets
Golden Chain
Ball Bearing
Steel
Circular White Labels
Magnets
Pendant is made out of plastic pellets that are melted into a liquid and then is poured into a mould to form the shape of the pendant. Located on top of the pendant is a hole for the golden chain to go through it so the user can wear it around their neck.
Ring is a ball bearing that is composed of steel. Photo Disc top surface has a flat surface to hold the circular white label that have adhesive backing. On the back side of the photo disc situated in the middle of the circle is a magnet. There is also one on the top surface of the pendant to keep the photo attached to the pendant.
Carissa Lo Lumea- Terminally Ill Patients by Carissa Lo
Parsons School for Design Professor Robert Rabinovitz
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Views
Top View
Oblique View
Bottom View
Side View
Various Age Group Scenarios
Carissa Lo Lumea- Terminally Ill Patients by Carissa Lo
Parsons School for Design Professor Robert Rabinovitz
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Technical Rendering
Cross Section and Exploded View
Technical Rendering
Exploded View
Carissa Lo Lumea- Terminally Ill Patients by Carissa Lo
Parsons School for Design Professor Robert Rabinovitz
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User Scenario
Step 1:
Step 2:
Step 3:
Taking the picture.
Downloading the picture.
Printing the picture.
Step 4:
Peeling the picture off.
Step 5:
Sticking the picture on the pendant.
Step 6:
Giving the pendant to the patient.
User Scenario
Step 7:
Patient wearing the pendant.
Step 8:
Taking the ring out.
Step 9:
Talking to the ring.
Step 10:
Giving the ring to a loved one.
Step 11:
Listening to the ring.
Step 12:
Rotating the picture.
Carissa Lo Lumea- Terminally Ill Patients by Carissa Lo
Parsons School for Design Professor Robert Rabinovitz
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Resources Cabrini Medical Center Hospice 227E. 19th St. Stuyvesant (212) 995-6480 Cabrini Medical Centers- Bereavement Support Services (212)- 995- 6869 Jacob Perlow Hospice Continuum Hospice 1st Ave at 16th St Ms. Carolyn J. Cassin Ms. Annette Farrell T. (212) 420- 3370 F. (212) 420- 2420
Bibiliography Bhattacharya, Anupama. “The Pleasure Principle” 2/5/06 http://www.lifepositive.com/Mind/happiness/pleasure. asp “Psychedelic-Assisted Psychotherapy for the Terminally Ill 2/1/06 http://www.maps.org/research/sewick.html “Older Persons’ Preferences for Site of Terminal Care” 2/3/06 July 20, 1999. Volume. 131 Issue 2. Pgs 109-112 http://www.annals.org/cgi/content/full/131/2/109 “Timing of referral of terminally ill patients to an outpatient hospice” 2/3/06 June 9, 1994 pages 314-320 http://www.ncbi.nih.gov/entrez/query. fcgi?cmd=Retrieve&db=pub med&dopt=Abstract&list uids=8077995&query hl=2&itool=pub med docsum Emanuel, Ezekiel J., “Assistance from Family Members, Friends, Paid Care Givers, and Volunteers in the Care of Terminally Ill Patients.” The New England Journal of Medicine 2/3/06 September 23,1999. Volume 34, Pages 956-963, Number 13 http://content.nejm.org/content/abstract/341/13/956? ck=nck
Carissa Lo Lumea- Terminally Ill Patients by Carissa Lo
Parsons School for Design Professor Robert Rabinovitz
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