Staten Island Special Child - April 2023

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4 | When the next step is an ie P Missing milestones and an Individualized Educational Plan

6 | 6 Ways to s upport s iblings of k ids with s pecial n eeds

Helping your child with special needs and your other children thrive

8 | learning Disabilities in Children

Marker Learning, an organization dedicated to helping children, shares their tips

10 | the b enefits of h orse therapy

For children with special needs, horse therapy can help with many physical, mental, and emotional needs

12 | 10 k ids’ b ooks

10 titles whose protagonists have special needs and that fall under every genre of fiction

14 | u nderstanding Dental Care for k ids with s pecial n eeds

Dental patients with special needs require a special kind of care

15 | m om stories

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Coo : Clifford Luster

Things you may not know about that special needs parent

16 | s pecial n eeds Directory

2022 get in touch

Staten Island Parent has been awarded the PMA Gold Award for Excellence in Editorial and the Bronze Award for Excellence in Digital Media. New York Family is published monthly by Queens Family Media, LLC. Reproduction of New York

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When the next step is an IEP

Missing milestones and an Individualized Educational Plan

By Emily lE vy

Have you noticed your child struggling in school? Perhaps they are having a hard time learning to read, can’t grasp multi step math problems, or are having difficulty staying focused in class. Their self-esteem is plummeting as school work becomes increasingly challenging, and their struggles seem insurmountable. Your child may have special needs and, if so, the sooner you can identify these needs and address them, the better it will be for their overall confidence and academic performance. So what can you do?

For starters, if you see your child struggling, talk to their doctor and teacher. Discuss milestones they may or may not have met and determine if their teacher notices the same challenges you see at home. If you feel these struggles are getting worse or think they may benefit from additional accommodations at school, you might consider having them tested. This testing can be done for free either through your state’s early intervention program (if your child is under age three) or through your child’s school district. The evaluation and specific tests administered may range, but evaluators will typically test your child’s IQ and will likely also test language, motor, behavior, and achievement skills.

IEP or 504 plan

Depending on the evaluation results and your child’s needs, your child may qualify for either an IEP or a 504 plan. An IEP details your child’s specific goals and a plan for what your school will do to help meet those goals, including specific services, like speech therapy, occupational therapy, physical therapy, and academic support. A 504 plan helps provide accommodations for support within the classroom, such as additional time on tests, an aide in the classroom, preferential seating, and/or modified homework. Typically students

who have a less severe disability (like anxiety, ADHD, etc.) and not a diagnosed learning disability will receive a 504. Students who need more services, including speech therapy, occupational therapy, physical therapy, special education teacher support services, etc., would receive an IEP. Note: School-aged children in private schools have a right to an evaluation if a disability is suspected. Work with your child’s teacher or school director to help you coordinate an assessment via the state.

Know Your Rights

Federal law indicates that every child is entitled to a free and appropriate education in the least restrictive environment possible. Three specific federal laws apply to children with special needs, including the Individuals with Disabilities Act (IDEA), Section 504 of the Rehabilitation Ace, and the Americans with Disabilities Act (ADA). These laws’ specifics can vary by state, so it’s important for you to understand the procedures and criteria specific to your state.

IDEA stipulates that a child’s issues must fall into one of 13 categories to be eligible for special education services. Section 504 mandates that schools cannot discriminate again students who have disabilities and are required to provide appropriate accommodations to them. Students covered under Section 504 usually have less severe disabilities or do not

fall into one of the categories stipulated under IDEA. The ADA indicates that children with special needs cannot be discriminated against and must be provided appropriate services and programs suitable to their needs. If your school district refuses to provide appropriate services to your child, you may initiate a due process hearing to challenge their decision.

Focus on Your Child’s Strengths

It is easy to go into a bit of negative space when dealing with your child’s educational support. Remember to focus on your child’s strengths; they may struggle with reading and writing but may excel with math computation. Or maybe your child is incredibly social, empathetic, and kind. Perhaps they are a beautiful artist, a great storyteller, or a whiz at building Legos. Praise your child for small accomplishments, like sitting next to a friend at lunch who seemed sad, drawing a beautiful flower, or creating an elaborate Lego tower. As you help your child academically with areas where they may struggle, continue to build their self-esteem, and explain that no one is perfect. We all have strengths and weaknesses, as well as areas we need to work on improving. Your special needs child can still have dreams and aspirations that can be achieved with support and guidance.

Updated by Donna Duarte-Ladd

6 Ways to Support Siblings of Kids with Special Needs

By Linda diProPerzio

So often, parents feel like they’re not doing enough for their kids. When you’re the parent of a child with special needs, that worry is taken to a different level as you work to make sure your child is getting everything they need to thrive. Another big concern? The impact your efforts to help your child with special needs thrive is having on your other children.

“When a child has special needs, parents have to learn to balance both the needs of that child and the needs of siblings,” explains Melissa Packwood, an educational consultant, certified teacher, and a mother to multiple children with special needs. “It can seem like the child with special needs gets special treatment when parents are simply meeting the child’s needs and making appropriate accommodations for that child.”

So, how can you make sure all of your kids are getting the love and support they need?

Supporting Siblings of Kids with Special Needs

Here are some tips to get you started.

Acknowledge it’s hard . Talk openly with your children about the challenges of having a sibling with special needs, recommends Emily Holl, director of The Sibling Support Project. Not only is it important to allow children to express how they are feeling, but it will also allow you to implement changes that help all kids in the family feel more included and supported.

Create small moments with each child . As the saying goes, quality over quantity. Simply create opportunities—10-15 minutes is enough—where each child has some time with you, recommends April J. Lisbon, Ed.D., an autism workplace advocate at Running

Your Race Enterprises and a mother of three, including one child on the autism spectrum. “Nothing fancy: It can be making a meal or playing a board game together.”

Make it a group effort . Create activities that can involve all of your kids, says Daniel Koffler of New Frontiers. This can include things like preparing for meals, getting ready for school, story time, board or video games, drawing, and more. “By including everyone, you can still give the added attention needed to your special needs children, but it helps parents with the balancing act by having everyone together,” Koffler says.

Keep communication open . Kathy Heath, an autism awareness advocate behind The Autism Edit and mom of three children, including one on the autism spectrum, makes sure to let all of her kids know that she and her husband are open to answering any of their questions—and nothing is off limits. “If they feel uncomfortable or treated unfairly, the door is always open to tell us where we are not meeting their needs and how we can

improve our relationship with them,” she explains.

Avoid expectations . While some kids may gravitate toward a helping role, especially as they get older, it’s not fair or reasonable to expect them to always drop what they are doing in order to manage their sibling’s needs. “Parents are wise to be aware of how much they are relying on their kids to act as a parent or replace their leisure time with sibling care, as it can lead to resentment of the special needs sibling as well as parents,” Holl warns.

Give yourself a break . Realize that there is no manual to creating balance at home. Give yourself grace when things don’t go according to plan, Dr. Lisbon says.

Linda DiProperzio has written extensively on parenting issues for Parents, American Baby, Parenting, and Family Circle, among others. She lives in New York with her husband and two sons. * This piece was originally posted on our sister site nymetroparents.com.

First Foot Forward

Over 30 years of experience serving preschool children with special needs!

Funded by New York City and State

3 convenient locations

We specialize in helping children with: Speech/Language Delays, Socialization Concerns, Developmental Delays, Poor Motor Skills, Sensory Needs, Autism Spectrum Disorder

For more information, visit SIJCC.org

WhatisSpellingtoCommunicate(S2C)? Itisamethodthatteachesthepurposefulmotortopointto lettersonaletterboardorkeyboardtoenablecommunication.

Whocanuseit? Autistic,nonspeaking(formerlycallednonverbal)people,and peoplewhohavescriptedand/orunreliablespeech.

Learning Disabilities in Children

By Jeannine Cintron

The most inspirational stories are often the kind where those at a disadvantage overcome obstacles and emerge victorious in spite of – and because of – the challenges they were faced with. Such is the case for Emily Yudofsky and Stefan Bauer, who were both diagnosed with dyslexia as children. After watching their own parents struggle to get the support they needed growing up, the pair teamed up to start Marker Learning, an organization dedicated to helping children with learning disabilities receive the diagnosis and resources they need to thrive in school.

We chatted with Stefan and Emily to delve into how their own experiences led them to start Marker and what parents can do if they suspect their child might have a learning disability.

Q: What are the signs of a learning disability parents should look for in their

kids? What are the signs of dyslexia, specifically, that parents should look for?

Emily: Learning and attention disabilities can present in a myriad ways. For example, a student with ADHD and executive functioning challenges may not be able to manage their time effectively, stay organized or prioritize multiple tasks.

With dyslexia, it can present in struggling to sound out words, substituting words, or even avoiding reading at all costs. We commonly see young children who are able to answer questions accurately when they are verbalizing, but have difficulty when they are writing out responses. Across the board, we find that for most students with learning challenges, they’ve lost a lot of confidence as they see their peers advancing and feel stuck. As a parent, it’s critical to notice some of the social and emotional challenges that might be manifesting because of a learning challenge.

Q: What are some of the types of learning disabilities you often see in children you

work with?

Stefan: We see a range of learning challenges in the children we work with, from reading, writing and math disorders like dyslexia, dyscalculia and dysgraphia, and attention disorders like ADHD which manifest in executive functioning issues.

Q: Is there anything parents can do to prevent learning disabilities?

Emily: The truth is learning disabilities cannot be prevented – we’re born with them and they last a lifetime. Many learning disorders are actually known to be genetic, running in families. So the question isn’t as much about prevention as it is about intervention, and the earlier, the better. This means pursuing a formal psychoeducational evaluation to understand what a child’s strengths and weaknesses are, and what services and accommodations they will need for long-term success. Then it’s all about providing evidence-based approaches to refine skills and get back on track.

Q: Tell us about Marker and what inspired you to start it?

Stefan: Our mission at Marker Learning has always been a very personal one. In elementary school, I really struggled with reading and was placed in special education. My mom knew something wasn’t right and fiercely advocated for me, quitting her job to ensure I had the support I needed to succeed, and paying thousands of dollars for a learning disability evaluation. I ended up getting diagnosed with dyslexia. By receiving this diagnosis and documentation, I was able to unlock accommodations in school that fundamentally transformed my trajectory in life. My co-founder, Emily Yudofsky, who is also dyslexic, had a similar experience as a kid.

Unfortunately, many families do not have access to evaluation. While K-12 students are legally entitled to learning disability assessments in public schools, diagnoses are often delayed or missed entirely due to unprecedented staffing shortages and backlogs. Private evaluators, meanwhile, can have months-long wait times and charge

exorbitant amounts of fees, often costing tens of thousands of dollars.

Our mission was inspired by these experiences. Our goal is to provide clear diagnosis and certified documentation for anyone who is dealing with a learning or attention disability – all for a much more affordable price and faster timeline.

Q: What work do you do in schools?

Stefan: We’re very excited to partner with a range of schools across the country (including some in New York). In fact, we already reach more than 1 million students through these partnerships. We work with

school district special education staff to manage caseloads and act as an extension of school psychologist teams. We want to help schools retain their staff and prioritize dayto-day student care.

Q: What steps do you recommend parents take after their child is diagnosed with dyslexia or another learning disability?

Emily: Once you have that diagnosis and documentation, it’s then really about advocating for your child to get the support they need at school. Ensure your child is set up with an IEP or 504 plan, a written roadmap ensuring your child receives special education services tailored to meet their unique needs. This will follow them through school, and staff should reassess needs over time as your child develops. Communicate frequently and directly to gain clarity about how your child is doing in the classroom, and what’s being done to support them. And be sure to ask your child how they’re doing, ensuring they know there’s nothing wrong with them. They have so many amazing strengths and everyone learns differently.

Elise Vetere, PhD., ABSNP Director

Diplomate in School Neuropsychology with extensive experience evaluating, diagnosing, and providing behavioral interventions for over 30 years.

Dr. Vetere has advanced training and is certi ed in the administration and scoring of the Autism Diagnostic Observation Schedule-2.

Dr. Vetere is also well versed and lectures on topics including “The Psychology of the Exceptional Child" and "Applied Behavior Analysis (ABA)".

“The question isn’t as much about prevention as it is about

and the earlier, the better.”

The Benefits of Horse therapy

for a child with special needs

By Serena norr

The bond between humans and horses is incredible. For children with special needs, horse therapy can greatly help with many physical, mental, and emotional needs in a safe and loving environment. This modality can help children with ADD/ ADHD, autism, visual impairments, Down’s Syndrome, cerebral palsy, MS, learning and behavioral disabilities, and much more.

Path International (pathintl.org) states, “Therapeutic/adaptive horsemanship contributes to the cognitive, physical, emotional and social well-being of individuals with disabilities.”

Understandably, wanting to learn more and understand the best way to approach horse therapy may be unknown to most. We recommend checking out The New York State Horse Council (NYSHC). This nonprofit organization provides information on horses and horserelated activities within or affecting the state of New York. There is also a handy guide to Therapeutic Riding Programs in New York.

Over time, horse therapy can improve balance and posture, muscle strength and posture, joint movement, communication, and more as your child forges a special bond with this beloved animal. Below are a few places in NYC, Long Island, and Westchester where your child can begin their horse therapy journey.

New York Cit Y

Flying Manes Therapeutic Riding, Inc.

Flying Manes Therapeutic Riding provides therapeutic riding lessons and other equineassisted activities and therapies to children ages four and up with physical, cognitive, and emotional challenges. Lessons help kids build their coordination and strength and improve cognitive, emotional, and social skills through exercises, games, and horsemanship skills. 6100 Mosholu Ave, The Bronx, NY 10471. 917- 524-6648, info@flyingmanes.org

GallopNYC

GallopNYC offers therapeutic horsemanship programs to aid kids who have developmental, emotional, social and physical disabilities. Their program helps riders learn new skills such as walking, talking, learning, having fun, and bonding with their horse. Locations in Forest Hills and Howard Beach. Programs are offered quarterly and riders who have physical disabilities will be evaluated by their physical therapist. Lessons cost $60 for a 30-minute group lesson and $65 for a 30-minute private lesson. GallopNYC Forest Hills, 88-03 70th Road, Forest Hills, NY 11375 and GallopNYC Sunrise Stables, 80-98 Linden Blvd, Howard Beach, NY 11414, 855-925-5661, info@gallopNYC.org.

Seaside 4 Therapeutic Riding, Inc.

Seaside 4 Therapeutic Riding is a non-profit organization and PATH Internationalcertified therapeutic horseback riding center dedicated to working with adults and kids

with disabilities and special needs. The program offers both indoor and outdoor training and aid work with riders based on a family’s specific needs. The program can help improve muscle strength, flexibility, and balance, increase self-esteem, confidence, mobility, and coordination, and improve concentration, communication, and more. The grounds also have a wheelchairaccessible restaurant and bathrooms. Lessons are $50 each, which includes 25 minutes of saddle time as well as time for mounting and dismounting. 116 Canton Ct, Brooklyn, NY 11229, 646-831-6256, info@s4tr.org.

Lo NG iSLAND

Great Strides Long Island

During the lessons at Great Strides, kids will learn how to improve balance, strengthen their muscles, flexibility and joints, and balance and posture. The team works with kids who have autism, brain damage, Down Syndrome, developmental disorders, ADD/ADHD, dyslexia,

and learning disabilities as well as kids with emotional, social and psychological disorders. Lessons are $60 for a 30-minute private lesson; $75 for a 45-minute private lesson; and $90 for a 60-minute private lesson. 41 Coram Swezeytown Rd, Middle Island, NY 11953, 631786-9708, julie@greatstridesli.org

Center for Therapeutic Riding of the East End

The Center for Therapeutic Riding of the East End’s mission is to ‘transform lives through the therapeutic power of horses.’ This non-profit organization is PATH certified and provides services to kids and adults with emotional, cognitive, and physical disabilities. Participants have to apply and be brought in for an evaluation before working at the center. 93 Merchants Path, Sagaponack, NY 11962, 631.779.2835, program@ctreeny.org.

HorseAbility

HorseAbility offers adaptive learning, which can help riders with physical, emotional and mental well-being as well as hippotherapy with Physical Therapists, Occupational

therapists, and Speech Language Pathologists. Hippotherapy provides physical, occupational and speech-language pathology to kids to help with their sensory,neuromotor and cognitive systems. Participants have to fill out a form to apply for these services. 223 Store Hill Rd, Old Westbury, NY 11568, 516-333-6151

WESTCHESTER

Access Equestrian

Access Equestrian offers adaptive riding and hippotherapy for kids with physical and mental limitations. This non-profit organization offers both group and private lessons that include groundwork, warmup exercises, skills development, activities, games, and trail rides. Programs help build students’ self-esteem, concentration, confidence, coordination, and more. 1 Succabone Road, Mount Kisco, NY 10549, 914234-9000, info@accessequestrian.org

Endeavor Therapeutic

Horsemanship, Inc.

The Therapeutic Horsemanship program at Endeavor offers clinical programs to kids

of different levels and abilities. Participants in the therapeutic program have to be four years old and up. Kids will learn mounting, steering, groundsmanship, grooming, anatomy of the horse, posing, half-seat, leg yields, and much more. Over time, kids develop improved fine motor skills, increased confidence, and ability to take multi-step directions. Families must submit paperwork to work with Endeavor, where participants will be asked to come in for an evaluation.

556 Croton Lake Rd, Mt Kisco, NY 10549, 914241-0211. program@endeavorth.org

Pegasus

Located on 22 acres with seven sensory trails, Pegasus offers therapeutic horsemanship for kids with special needs from PATHcertified instructors. Programs provide basic riding, ground horsemanship, and exercises to improve balance, posture, mobility, and concentration, create the mind/muscle connection, and more. Participants have to fill out a form and pay a $55 evaluation fee. 310 Peach Lake Road Brewster, NY 10509, 845669-8235 x115, program@pegasustr.org.

10 Kids’ Books That Star Protagonists with Special Needs

By Jacqueline neBer

Representation is hugely important in kids’ and young adult fiction. Unfortunately, it can seem like the selections that star kids with special needs as main characters–not sidekicks–are few and far between. If you have a kid that would love to read about a character like him–or would just like to see the world from a different perspective–this can be discouraging. So we’ve rounded up 10 titles whose protagonists have special needs, and that fall under every genre of fiction, so your child can see herself represented in works that might become some of her favorite reads.

Roll With It

by Jamie Sumner

This novel stars

Ellie, a sassy, take-no-prisoners 12-year-old who wants to be a professional baker and who happens to get around in a wheelchair.

When she and her mom move to a new town to help her grandma out, readers will get an inside look at what it means to navigate school, friends, and family with a physical disability. Roll With It is funny, poignant, and real.

Bouncing Back

by Scott Ostler

Carlos Cooper used to own the basketball court, but now, after the accident, can’t find his way on the wheelchair basketball court. He’s still learning the ropes when the corrupt mayor threatens to demolish

the wheelchair team’s practice court, but when the game he loves is threatened, Carlos realizes he has to get it together or leave basketball behind. This book brings kids into the wild world of wheelchair basketball.

The Curious Incident of the Dog in the Night-Time

by Mark Haddon

This is a classic that your child might be required to read in high school. But if he’d like a head start, he’ll be enthralled by the narration of Christopher John Francis Boone, a 15-year-old with a superbly logical brain. Christopher relates well to animals, but not to humans. He knows all of the countries of the world and their capitals, but cannot stand to be touched. It’s Christopher’s penchant for rules and patterns that leads him to be the hero of the story, attempting to solve the murder of his neighbor’s beloved dog, Wellington. Christopher experiences the world completely differently than many kids, which is exactly why yours should read this book.

Wonder by R.J.

Palacio

August “Auggie” Pullman just wants to be ordinary, but he was born with a facial difference that classmates at his new school just can’t seem to get over. The book switches from Auggie’s hilarious perspective to his classmate’s, his sister’s, her boyfriend’s, and more to paint a portrait of a whole town

learning how to be accepting. It’s a must-read to teach tolerance, kindness, and perspective.

Flying to the Light

by Elyse Salpeter

This novel gives kids a chance to experience the perspective of a teenager who has a sibling with special needs. Michael Anderson and his little brother Danny, who is deaf, are faced with mortal danger after their parents are kidnapped and the brothers find themselves on the run from a truly creepy villain. When Michael figures out that Danny has a special gift, he must figure out how to protect him from those who might want to abuse it. Flying gives voice to a character many readers who have siblings with disabilities might relate to.

We’ll Paint the Octopus Red

by Stephanie Stuve-Bodeen

Six-year-old Emma can’t wait for all the things she’ll be able to do with her baby brother, Isaac. When she learns he has Down syndrome, she starts thinking in terms of what Isaac can’t do. But with the help of her dad, Emma learns to be patient with Isaac, and discovers that with compassion (and a good big sister!), Isaac can do anything. This is perfect for little readers ages 3-7 and showcases the power of compassion and acceptance–and because of that, is a great read for kids of all ages.

Anything but Typical

by Nora Raleigh Baskin

Jason is a 12-yearold with autism who doesn’t feel like he belongs in the neurotypical world. But that begins to

change when he meets PhoenixBird–aka Rebecca–online, posting stories to the same site he does. Jason can finally be himself. He thinks Rebecca could be his first real friend, but is terrified that if they meet in person, Rebecca won’t be able to see past Jason’s disability. This novel is an eye-opener into differences, acceptance, and what it means to be yourself.

Wilma Jean the Worry Machine by

Julia Cook

Anxiety in kids often goes misdiagnosed, but worriers will definitely see themselves in Wilma Jean, a little girl who sometimes finds her anxiety impeding her life. The book aims to normalize anxiety for kids, give kids the tools to feel more in control, and provide parents with tips for lessening the

severity of their child’s anxiety–all while telling a funny and relatable story.

Counting to D by Kate Scott Sam is dyslexic, smart, and can’t read–so kids at her old school never knew how to treat her. When Sam moves to a new city and falls in with the Brain Trust, a group of über-competitive smart kids that includes her new crush, she decides to keep her learning disability a secret. But the odds of getting the guy, the grades, and more are stacked against her. Readers who have learning disabilities of their own–and really any reader–can relate to Sam’s challenges and triumphs.

My Brother Sammy is Special by Becky Edwards and David

AHRC NYC James P. Murphy Staten Island Prep

At the James P. Murphy Staten Island Preparatory School, we are proud to provide a rigorous curricular program combined with ABA programming to meet the needs of students with disabilities from ages 3 to 13. Our curriculum includes ELA, mathematics, science and social studies with the use of the Next Generation Learning Standards modified for our students to access instruction. Our school is excited to provide on-site related services and a social emotional learning emphasis for each student in our building. Small classroom ratios and specially trained staff allow for an individualized experience and approach to learning.

Armitage

Younger kids who have siblings with special needs might see themselves in Sammy’s brother, who gets frustrated by all the things Sammy cannot do–like take the same school bus, play in the park, or be a “normal” brother. But just as Sammy’s brother learns that Sammy’s autism doesn’t mean he can’t be a good brother, readers will learn an important lesson about acceptance, differences, and the power of family.

Jacqueline Neber is a social journalism MA candidate at the Craig Newmark Graduate School of Journalism at CUNY. When she’s not reporting, you can find her petting someone else’s dog. This article was originally posted on our sister site, nymetroparent.com.

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Understanding Dental Care for Patients with Special Needs

By Phyllis G. Merlino, DDs

When it comes to the dentist, every patient deserves the best care. But dental patients with special needs require a particularly special kind of care.

Patients with special needs may include children or adults who have physical limitations, medical complications, developmental problems, cognitive impairments, sensory issues or some combination of disabilities. These individuals often require modified care and may need specialized support to ensure a successful dental visit.

Developmental conditions, such as Down syndrome, epilepsy, and cerebral palsy, as well as cognitive challenges such as autism spectrum disorder, attention deficit hyperactivity disorder or dementia, also require adjustments to office visits.

Dental health professionals, specifically those with post-graduate training in Pediatric Dentistry and Special Care Dentistry, are prepared to accommodate patients with special needs.

Barriers to Dental Care

Patients with special needs frequently experience barriers to care. Often, the ability to pay for care remains an obstacle. Insurance policies may not cover specialized dental care, or the cost of modified treatments required.

Another barrier is finding a dental practice with the ability to understand and treat patients who require a specialist’s touch. Together, the American Academy of Pediatric Dentistry and the Special Care Dentistry Association provide education and networking resources to professionals with the goal to increase access to oral healthcare. The American Dental Association, through its rigorous training programs, ensures there are dental professionals able to meet the challenges of the patients that need this type of gentle dental care and understanding.

A third barrier to care is a physical one. Some patients with special needs may require an accessible location, and to transfer from wheelchair to dental chair to receive treatment. Modifying the wheelchair to mimic the dental chair or conducting standup dental procedures are possibilities when wheelchair transfers are not possible.

Getting the Proper Care Caregivers are valuable resources when treating patients with special needs because they can provide feedback on the best time of day for treatment, behavioral management, communication assistance, insight into treatment needs, and additional information about patients’ disabilities.

In addition to obtaining a comprehensive medical history, patient assessment and pretreatment planning are important. The dental team should coordinate oral care with patients’ physicians, social workers, nurses, etc. to provide the most effective treatment.

Once a patient with special needs is at a dental visit, the clinician will communicate the treatment plan in terms that are appropriate for the patient’s comprehension level. Patients with dental anxiety may fare better with the tell-show-do approach or when provided the opportunity to touch the dental instruments before they are used in their mouths. Clinicians should be attentive to the specific needs of each patient throughout the appointment.

Helping Patients Maintain Effective Homecare

Patients with special needs may exhibit poor oral hygiene due to difficulty in performing self-care or taking medications that cause negative oral health side effects.

Dentists can recommend self-care routines to improve the effectiveness of oral hygiene regimens. For example, for patients who have difficulty grasping, the use of a wide-handled power toothbrush is recommended. Other recommendations might include the use of pillows and mouth props to toothbrush modifications and standup dental treatment.

Dental professionals should provide caregivers with information on the importance of oral health, nutrition, and oral hygiene techniques so they can help patients to remain healthy.

An educated and experienced dental team, as well as a friendly office atmosphere, is a very important part of the treatment as a whole. The initial impression needs to be an inviting one. Treating all patients, but especially those with special needs, is a team approach – patients, caregivers and dental team - all working together for a common goal.

Dr. Phyllis G. Merlino is a Board-Certified Pediatric Dentist with private practice in Staten Island, New York.

Things You May Not Know About That Special Needs Parent

By Donna Duarte-LaDD

Iwas at a restaurant the other night. We made the reservation early as we brought our 6-year-old to a large family dinner. Mateo is autistic and early hours are better for a number of reasons, for restaurants are one of the most challenging places for us to take him. When my son started stimming (redundant or unusual movements or noises that help handle emotions like excitement, anger, anxiety and fear), a family at a table on the other side of the restaurant began to stare. They continued to gape, including the mother, who could not stop staring at me I tried to contain my anxiety as the looks were not ‘ah, we get it’ gazes; they were more like ‘his noise is making me uncomfortable — get him to stop’ looks. Urgh, here we go again. Four years ago, when being a mother of a special needs child was new, I would apologize, red flames moving upwards through my body from embarrassment. If there were a way out, I would take it, folding my body and my son’s into an invisible ball of shame as we quickly took the first exit. Pangs of guilt would pierce through me for failing to ‘make’ my son normal so all around us would feel comfortable.

Now, fast forward to that moment at the restaurant. I am fierce now; most special needs parents are, as we do not have a choice. We have years ahead of us of advocating for our child one way or another. I did not dash away with my child; we let him stim, no shhhhs from us; he was happy with all his relatives around him. I have accepted that I cannot change how people process or receive my child, but I can protect him. You can give me all the side eyes you want, but I now know my only job is that my child has a beautiful life.

Of course, I wish for more people to understand a special needs parent, for there are numerous things you cannot see. Many

do not see the hours we spend advocating for our children while holding full-time jobs. They sometimes end up in the hospital, for their immune systems are vulnerable, depending on their disability. We get blamed for them not acting like ‘other’ kids. We may even get blamed for them being in the hospital. The paperwork we fill out is endless. We have to call the school bus because they may be getting bullied. If they are non-verbal, we are their voice. We cry in the shower. We cry at the supermarket. We scream into our pillows.

What I would have wished the other evening at the restaurant was for that family not to have missed a teachable moment. I often have to share that my son

is special needs with pretty young kids at the playground to explain his lack of social skills. They never miss a beat; they absorb the information and are gentler around my son.

One day as inclusivity is more woven into the world, most (hopefully) will not give a person different from them a second glance. And that mother at the table will be educated by her kids and their ‘normal’ experiences. She may understand more that a parent may be struggling at that moment, and a simple smile may help them get through that awkward moment they are experiencing. None of us know everything, and that person may just be a special need parent quietly holding her family — and herself — together.

a very s pecial Place

49 Cedar Grove Ave., 10306 info@avspny.org avspny.org

A Very Special Place, Inc. (AVSP) was established in 1974 as a not-forprofit organization and today serves more than 1,600 people in Staten Island, Brooklyn and Manhattan. AVSP provides a comprehensive network of programs and services for people with intellectual and developmental disabilities and their families. Programs include day habilitation, residential, self-direction, respite and community habilitation. With the guidance and support offered at AVSP, people of all ages find opportunities to achieve independence and self-fulfillment.

Crimson r ise

1015 Castleton Avenue, 10310 info@crimsonrise.org crimsonrise.org

CrimsonRise is a nonprofit

organization for nonverbal autistic children and adults to help them get communication access. They serve autistic individuals, ages 5+, who have sensory, movement and communication differences. CrimsonRise teaches these individuals how to Spell to Communicate (S2C). S2C is a method that teaches the purposeful motor to point to letters on a letterboard or keyboard to enable nonspeakers (formally called nonverbal) to communicate.

Cultivating i ndependence in all Children

347-620-0511

Jaclyn Shaw’s store, Cultivating Independence in All Children, holds hundreds of downloadable activities and toolkits for fun and interactive sessions. As a master-level behavior therapist, Jaclyn’s experience ranges from neurotypical children to

694 New Dorp Lane, Staten Island, NY 10306

347-857-6888 www.harvestcafe -si.org

The Harvest Café is owned and operated by A Very Special Place, Inc., whose goal is to create new opportunities for people with intellectual and developmental disabilities. The Café is a certified training site for those who want to learn new skills in a distinctive environment.

“Great Food With a Mission….”

Serving Breakfast, Lunch & Weekend Brunch

Wednesday-Sunday, 8:00am-3:00pm

Catering and Take-Out available

supported persons with ID or autism. Her weekly social skills acquisition groups are tailored for individuals with ID, TBI, or autism - utilizing precision teaching methods to enhance communication fluency, engagement, self-awareness, empathy, and socialization skills. Skill acquisition programs generally span 3-6 months.

Dr. Phyllis g . m erlino

Todt Hill Pediatric Dentistry 268 Todt Hill Road, 10314 718-761-2090 drmerlino.com

Dr. Phyllis G. Merlino, a Board Certified Pediatric Dentist treats children of all ages and is specially trained to treat patients with special physical, mental and healthcare needs in a calm and caring atmosphere. The office is committed to quality dental services that ensure your child continues on the path toward a bright future of good oral health. Children are not always willing to

visit the dentist and Dr. Merlino strives to make the experience of each visit more positive for them.

e arly start

718-887 5128

ei@earlystartinc.com

earlystartinc.com

Serving Staten Island and Brooklyn. Early Start is an Early Intervention Program that provides home-based evaluations and therapeutic services for children from birth to 3 years old. They have been providing Speech/Feeding, Physical, Occupational and ABA therapy for 30 years. Dr. Vetere the Director specializes in the assessment and diagnosis of ASD. Serving Staten Island families since 1993.

First Foot Forward 1466 Manor Rd. 1297 Arthur Kill Rd. 2221 Richmond Ave. 718-701-0268

Little Essentials

Toddler Program

An integrated Pre-K readiness program that sets the foundation for children to gain the life skills that will prepare them for future success. Through small group instruction, children are given the opportunity to develop the receptive and expressive language skills needed for collaboration, communication, socialization, and problem solving.

Our indoor sensory gym and outdoor play yard offer endless opportunities to learn and grow! Our staff consists of NYS Certified Teachers, Speech-Language Pathologists and Occupational Therapists.

(718) 494-4069

Info@wherelittlemindsgrow.com

mkahn@sijcc.com sijcc.org/first-foot-forward.

html

First Foot Forward is a preschool program for children 2.6 to 5 years old with developmental needs. Their individualized curriculum allows children to reach their full potential in a nurturing environment. New York City and State fund programming. All services (evaluations, transportation, tuition) are at no direct cost to parents.

g uiga l aw P llC

1682 Victory Boulevard, 10314 929-415-8700

planyourwholelife.com

Guiga Law is dedicated to providing parents with peace of mind knowing that your children with special needs will be well taken care of if you are unable to care for them yourself. Guiga Law offers a variety of estate planning tools designed to help you choose future guardians to care for your children

and pass on assets so your children can live a quality life without jeopardizing government benefits.

James P. m urphy, staten

i sland Preparatory s chool

23 Summit Street,10307 718-285-9377

ahrcnyc.org

AHRC NYC James P. Murphy

Staten Island Prep is a preschool and school-age program for students with disabilities from 3-13 years of age. The school meets student’s individual learning needs using a multisensory approach in congruence with ABA programming while implementing the Next Generation Learning Standards. Classroom ratios are 6:1:2/8:1:2 in the preschool classrooms, and 8:1:3/10:1:2 in the school-age classrooms. In addition, SIP offers related services such as speech, OT, PT, and counseling within the building.

m arvin’s Camp for Children with s pecial n eeds

1301 Manor Road, 10314 718-475-5268

lirizarry@sijcc.com camp.sijcc.org

Marvin’s Camp for Children with Special Needs is committed to providing an educational, creative, social, and safe environment for kids and teens with disabilities. All Marvin’s programs are led by highly experienced staff with degrees in special education, social work, and school psychology. Low staff-tocamper ratios. They also offer an inclusion program in their traditional camp program. Interview is required for all new campers.

o n your m ark 645 Forest Ave. #2A, 10310 718-720-9233 info@onyourmark.org onyourmark.org

Did you know that On Your Mark operates businesses that employ individuals with intellectual and/or develop -

mental disabilities? Every purchase helps to maintain and expand these programs. Novel Tees at 130 Victory Boulevard, The On Your Mark Cafe and On Your Mark Chocolatiers at 639 Forest Avenue and The Cafe at Carmel Richmond Nursing Home at 88 Old Town Road. Visit one today!

Person Centered Care s ervices

150 Granite Avenue, 10303 pccsny.org info@pccsny.org

Person Centered Care Services is a not-for-profit organization creating social change within communities by supporting people with disabilities on their search for identity and acceptance. Services available include Community Supports, Residential Supports, Career Supports, Day Supports, Family Education & Training, and Self-Directed Supports.

r ichmond b ehavioral a ssociates

260 Christopher Lane Staten Island, NY 10314

718-317-5522

rbany.com

Richmond Behavioral Associates (RBA) was founded to conduct safe, precise, well controlled clinical research with potential new and existing medications. RBA specializes in psychiatric medications and conducting clinical trials for conditions such as Autism, Depression, Bipolar Disorder, Schizophrenia, Alzheimer’s Disease and Anxiety and is located at the extreme south end of Staten Island, only two miles from New Jersey.

s andra m azzucco, s peechl anguage Pathology

465 Belfield Avenue, 10312 917-825-9005

Providing speech and language therapy to the Staten Island community for over 40 years. Toddlers to seniors. Specializing in fluency and

stuttering, language and feeding disorders. Prompt trained for Apraxia of speech and phonological and articulation disorders. ASHA certified. New York state license in Speech and Language Pathology. Department of Education RSA accepted.

s unny Days Consulting

s ervices

1110 South Avenue-Suite 405, 10314 718-556-1616

sunnydays.com

Sunny Days provides homebased evaluations and ongoing therapy for infants and toddlers (ages birth to three years) suspected of having any developmental delays. They offer Speech Therapy, Occupational Therapy, Physical Therapy and Special Educational services. Services are funded by the NY State Department of Health. No out of pocket expenses necessary.

Person Centered Care Services is a not for profit organization creating social change within communities by supporting people with disabilities on their search for identity and acceptance.

OUR CORE VALUES: suPPort

Our responsibility as human beings is to support ourselves and one another

eQuity

To participate in community is to have active citizenship. To be a participating citizen, one must have opportunities which are equitable; which accommodate the differences all human beings have.

aCCeptance

One of the most vital components of having a quality of life is love. It’s okay to tell someone you love them; more importantly, it’s okay to show them. To accept another for who they are and what makes them human can be a most validating experience; it is self-empowering.

SERVICES OFFERED:

the g race Foundation

460 Brielle Ave, 10314 718-983-3800

graceofny.org

The Grace Foundation improves the lives of individuals and families affected by Autism Spectrum Disorder (ASD). Grace provides programs including Site Based Respite/In-Home Respite, Day Hab, Com Hab and for ages 5-30. The ultimate goal is to enable individuals with ASD to lead independent and productive lives.

the Community school High School: 201-862-1796

CHSoffice@communityschool. k12.nj.us

1135 Teaneck Road, Teaneck, NJ Lower School: 201-837-8070

office@communityschool.us

11 W Forest Ave, Teaneck, NJ communityschoolk12nj.org

Community School serves the bright child with learning and attentional disabilities. For 55 years the school’s primary goal has been to help children achieve a level of classroom performance that is fully com-

mensurate with their abilities, intellects & talents. Located in Teaneck, NJ, just over the George Washington Bridge.

Where little m inds g row

501 Richmond Hill Rd., 10314 718-689-2795

info@wherelittlemindsgrow. com

wherelittlemindsgrow.com

Where Little Minds Grow is an integrated learning program that offers an interactive and multi-sensory language based approach for successful learning. Their programs are led by special educators and include Speech Therapy, Occupational Therapy, special instruction, Little Essentials Toddler Program, integrated activity classes and Summer Camp. They provide services in both individual and group settings alongside the support needed for language acquisition, and to attain socialization skills. Where Little Minds Grow indoor sensory gym and outdoor play yard offers endless opportunities to learn and grow!

If something happens to you, do you know:

Who will care for your children and how they will be cared for?

If an inheritance from you or another loved one will disqualify your child for important special needs services?

Day Supports

• Residential Supports

Career Supports

• Housing Rental Subsidy

• Community Habilitation

• Respite Family Education & Training

• Self-Direction

If your assets will be tied up in court and unavailable to care for your children?

Call us today to learn how to make sure your children with special needs are cared for by who you want, the way that you want, no matter what.