DRM- Disability Review Magazine by Seven Star Media

DRM DISABILIT Y REVIEW MAGA ZINE

MADELINE STUART:

ISSUE 2 - 2020

DISABILITY NEWSBEAT MyPlus: 6 top tips to boost your employability

The worldâ&#x20AC;&#x2122;s first supermodel with Down Syndrome talks fitness, finance & fashion

MY EXPERIENCE ON THE MOTABILITY SCHEME Sarah Alexander DERWEN COLLEGE: Dance & Tennis

REAL STORIES: Alfie & Monique DIVERSITY AND INDEPENDENT LIVING INCLUSION Will prep with STEP IN THE WORKPLACE

MONEY SAVING TIPS CONSIDER THIS! & DISCOUNTS FOR Autism in the Family DISABLED PEOPLE

FITNESS ADVICE NEW HEALTHY EATING FOR WHEELCHAIR Easy Recipe USERS

On an Island Riding Centre holiday, horse riding is accessible to everyone Steven is thrilled to be back in the saddle! On Steven Benson‘s thirty-first birthday he was able to get on horseback for the first time since he was a child. As Steven, who has from cerebral palsy, was lifted from his chair onto Bluebell he was watched and supported by his mum Carol and dad Chris. His regular carers Karen and Kit were alongside as the horse patiently walked Steven round in comfort in the centre’s indoor arena. Steven’s emotional mum Carol said, “Many years ago when Steven was a lot smaller he used to absolutely love horse riding. Unfortunately due to his size it became impossible to lift him up on to a horse. This opportunity now enables him to get back in the saddle and enjoy an activity he loves. It will also enable others like Steven to take full advantage of this facility which is fantastic.”

Steven from Wootton on the Isle of Wight, was the first lucky rider to use the hoist at Island Riding Centre. He was already a regular visitor to IRC, attending the centre’s ‘Messy Play’ sessions with Scope. A new Changing Places toilet enables him and others the chance to leave their home for a welcome change of scene and which, until February this year, meant only watching the horses.

Discover more about Island Riding Centre accessible holidays and book your own adventure at www.islandriding.com or call 01983 215000 now.

The para rider hoist (inset above right) was funded by Wight Horse CIC with the kind support of Wave FM and Ryde School, whose fundraising included a pub quiz, bake sale and line dancing!

Specialist facilities for wheelchair users Island Riding Centre (IRC), which opened in 2017, has both an indoor and outdoor riding school. The centre is equipped with a para rider hoist capable of lifting a wheelchair user straight from their chair onto horseback. There is also an adapted mounting block (left), enabling two helpers to assist a rider on to their horse. The centre is an RDA Accessibility Mark facility; staff are experienced in working alongside new and experienced riders with physical limitations. The centre also provides safe on-site hacking and stable management sessions as well as pony pampers including rides for younger children. There is also a viewing café operated by the Wight Horse Community Interest Company, with all profits going towards subsidised riding for those with both physical and financial difficulties. Plus Island Riding Centre has its very own Changing Places toilet.

Enjoy an accessible holiday on the farm Opened by TV presenter and former Paralympian Ade Adepitan (right), The Gallops is a purpose-built holiday complex in fifty acres of countryside on the outskirts of Newport, the historic county town of the Isle of Wight. The ten accessible three and four bedroom cottages, set around a courtyard, feature low-level threshold entry, downstairs bedrooms and wet rooms. There are easy-reach showers and sinks, with recesses for easy access, plus a range of accessible equipment including shower wheelchairs and seats, toilet risers and grab rails. Pegasus (see below) has a downstairs bedroom with king-size bed and wet room, both with emergency pull-cord alarms. The openplan living area in all the accessible units has a dining area and kitchen, opening onto a patio garden with ample seating for al fresco dining. In the kitchen, two adjustable-height worktops allow the sink and hob to be set at convenient heights, and the low-level microwave and side-opening oven make meal preparation more comfortable for wheelchair users. Two further twin bedrooms on the first floor share a family bathroom, while a huge master bedroom has its own en-suite shower room with toilet. Outside is an electric vehicle charging point free for guest use.

Paralympian gold medallist Tony Downs cooking in Pegasus

I WIGHT

As one of the sunniest pla ces in the whole of the UK, the Isle of Wigh t has been popular with tourists for many years. With glorious sandy beac hes, spectacular scenery, quaint villages and a host of accessible visitor attractions there is some thing for everyone. Located a few miles off the south coast, your holiday starts the mome nt you embark on the short ferry ride from one of three local ports.

Wish you were here!

DISCOVER MORE AT WW

W.VISITISLEOFWIGHT.C O.UK

TOP TIP Island-based charity Isle Access is a great source of information on where to visit, eat and enjoy the Island. www.isleaccess.co.uk

D R M CONTENTS

WELCOME

WELCOME to DRM 2020 – which includes our popular Disability News Beat, plus information on all disability categories – vision impairment, deaf and hard of hearing, mental health conditions,

Employment & Education:

intellectual disabilities, acquired brain

9 Humanforce App

injuries, autism spectrum and physical disability. This issue includes advice on finance, will preparation and tips on employment.

Making the workplace more accessible for people with a disability

12 Disabled Candidates are Premium Candidates Jane Hatten, Director of Evenbreak tells us the benefits of employing disabled staff

We also have an interview with Down

14 Madeline’s World

syndrome supermodel Madeline Stuart, as

Down syndrome supermodel shares how her life changed after she shared her weight-loss story online

well as real stories about life with various disabilities. This issue we introduce our new Healthy Eating section with an easy avocado recipe!

DRM

CONTENTS

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Best wishes The DRM Team

18 MyPlus Six top tips to boost your employability from MyPlus Consulting

Independent Living: 20 HSBC Making banking services accessible to all

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CONTENTS D R M

COVER CREDITS: Model: Madeline Stuart madelinestuartmodel.com Photo: Permissions from Rosanne Stuart

Executive Editor: Lee Gatland

Art Director: Richard Hejsak

Managing Editor: Jordan Martin Jordan@sevenstarmedia.co.uk

22 How can I make sure my disabled child is provided for when I die?

Proofreader:

Will preparation from specialists at Step

Ara E Lee Ara@sevenstarmedia.co.uk

27 Moving during a Lockdown? Some things that may support you during an uncertain time

30 Life with Brittle Bones Disease Monique shares her story

Sale Team:

32 My Life Alfie has cerebral palsy; he shares his story

Motoring & Mobility: 37 Motability! Moving from a car to a Wheelchair Accessible Vehicle: Sarah Alexander’s experience on the Motability Scheme

Disability Sport: 48 All the right moves A street dance crew from a specialist college stole the show at a dance competition

49 Anyone for Tennis?

Travel & Leisure:

Derwin College students rally together for their first tennis festival

44 Everybody needs a break

50 In the Ring

Charity, Revitalise creates holidays for disabled people and carers

45 CONSIDER THIS! Husband and wife, Kelly and Hester Grainger share their stories of how Asperger’s has become a part of their family’s life.

47 2020 20 travel tips for the vision impaired

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Kate Farley boxes on her knees despite cerebral palsy

Healthy Eating: 51 Smashed Avo on Toast RECIPE

Adoption & Fostering: 53 Supporting Mental Health for Adopted Children

01959 574 556 sales@sevenstarmedia.co.uk

Published by SEVEN STAR MEDIA LTD 184 Main Road, Biggin Hill, Westerham, Kent Tel: 01959 543659 www.sevenstarmedia.co.uk Disclaimer: Disability Review Magazine (DRM) is published bi-annually (twice per annum) by Seven Star Media Ltd. No part of DRM may be reproduced, stored in a retrieval system or transmitted to any form without permission. Views expressed in the magazine are not necessarily those of Seven Star Media Ltd, and are included to provide advice only. No content is a substitute for professional medical advice. During printing, images may be subject to a 15% variation. © Copyright of content belongs to individual contributors with the magazine copyright belonging to Seven Star Media. All rights reserved. Please either keep this magazine for future reference, pass it on for somebody else to read, or recycle it.

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D R M NEWS

DRM

DISABILITYNEWSBEAT

Award for deaf teacher Alysha Allen “A profoundly deaf primary school teacher in north London has been awarded for her outstanding contribution to teaching. Alysha Allen teaches pupils at Brimsdown Primary School in Enfield using sign language and lip reading, and many of the students are now fluent in signing as a result. She was presented with the Special Contribution Award by the Maths Hub, a national organisation that aims to recognise excellence in maths teaching.” BBC, see the video on https://bbc.in/2xHucL9

Crowd Funding The economy has been hit and so has socialising – but despite the physical distancing there are lots of people in the world that support those in need or support the creative endeavours of others. Try gofundme.com or kickstarter.com for two great crowd funding platform options.

St Mary’s ABC lead pioneering programme to help those with Parkinson’s The Boxing for Parkinson’s programme enables anyone with Parkinson’s and their carers to don boxing gloves and train in a safe, monitored and controlled environment. Participants also have the opportunity to socialise and chat before and after the session – with a welcome cup of tea, of course. “Once again, boxing is proving so powerful in helping all of the community achieve greater health, whilst having fun and socialising,” said coach Wayne Smith. www.englandboxing.org

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Rehab Guru launches Telephone Consultations Rehab Guru, the comprehensive exercise prescription Saas (software as a service) platform for fitness and medical professionals, has launched a new Telehealth service. The service will enable practitioners to continue to trade, offering much needed consultation services via video calling to patients, as many face closures due to Covid-19. Rehab Guru has also offered the whole platform available free of charge to the NHS to support the ongoing efforts in keeping the public fit and healthy during the pandemic. Simon Taylor, Co-Founder of Rehab Guru, said “Many of Rehab Guru’s customers are self-employed professionals or small and medium sized businesses whose livelihood relies on a continued trade. Over the last [number of] weeks we’ve seen the world responding to the COVID-19 pandemic, which has motivated our team to work tirelessly on the video calling features to offer our users a way to continue delivering care to their patients remotely.” Video demonstration: https://bit.ly/2YK4Kjs

A message from the DRM team during lockdown and the global pandemic: We understand that these times can be testing and troubling – but please take care of yourself and of your loved ones. Adhere to the restrictions applicable here in the UK with regard to isolation, social distancing and self-care – but take some time to soak up vital vitamin D either by sitting on your balcony or spending some time in the garden. And do other things that are important for your immune system and overall health and wellbeing, these include, but are not limited to, eating fresh fruit and vegetables, exercising, speaking to loved ones, colouringin or painting, cooking and reading uplifting literature. Well wishes from us all!

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NEWS D R M

DRM

DISABILITYNEWSBEAT

Stop Charlie’s Seizures Family launch legal action for infant son denied access to essential medical treatment, despite being refused legal aid

CHARLIE Hughes was diagnosed with Infantile Spasms at ten weeks old. He was later diagnosed with West Syndrome, a rare condition characterised by spasms and developmental delay. He has in the past suffered up to one-hundred spasms a day and his condition has been largely resistant to anti-epileptic medication. Doctors have confirmed that Charlie’s seizures are causing damage to his developing brain and any treatment that reduces these seizures will reduce the damage being caused. Conversely, withdrawing any such treatment will likely result in further damage and could have life-threatening consequences. However, in May 2019 Charlie started taking two cannabisbased medicinal products (CBMP); Bedrolite and Bedica, which his parents obtained from a private doctor. The drugs are manufactured in Holland according to the EU guidelines for good manufacturing practice (GMP). Since taking the drugs Charlie’s seizures have reduced to less than ten a day and some days he is seizure free. There was also a significant improvement in his social and physical development. Charlie was happier, more alert, far more vocal, constantly babbling and began taking an interest in general plastic toys. An electroencephalogram (EEG) in October 2019 provided objective evidence that the drugs are working, showing significantly reduced epileptic activity in Charlie’s brain. w w w.seve ns tarme dia.co.uk

Charlie’s NHS doctors accept that there has been a significant improvement in Charlie’s condition due to the cannabis-based products and say they would prescribe them if they could. However, the NHS Trust responsible for Charlie’s care says that the NICE Guideline on the prescription of medicinal cannabis prevents them from prescribing it. NICE say that their Guideline does not prevent prescriptions from being made, where it is clinically appropriate. But the way the Guideline is worded does not give doctors and NHS Trusts the confidence they need to prescribe the products. Charlie’s MP Chloe Smith wrote to the Secretary of State for Health and Social Care, Matt Hancock, to ask how the situation could be resolved. Mr. Hancock responded that he was “determined that patients should receive [cannabisbased] products where it is clinically appropriate”. But the situation has not changed for Charlie; he is still being refused a prescription. As a result, Charlie’s parents have to pay thousands of pounds a month to pay for the drugs privately. This is not affordable in the long term and they worry that they will run out of money, with life threatening consequences for Charlie. They feel they have little option but to bring legal proceedings in the form of a judicial review against both NICE and the NHS Trust. Alice Hardy, a Partner at Hodge Jones & Allen who is representing Charlie’s family, said: “Charlie’s family are challenging the failure of the NHS to prescribe what, for their child, is a life transforming, and possibly lifesaving, treatment. The failure of NICE to take a clear position on whether CBMPs can be prescribed in such cases has had damning ramifications for Charlie’s family and so many others in the same position.” Alison Hughes, Charlie’s mum, said: “Charlie is only two years old, but he has spent the whole of his life trying different medications, many unlicensed for children and most with damaging effects on the developing brain. Finally, we’ve arrived at a treatment that is helping his condition. We are desperate to have CBMP’s approved. Every day that we don’t see justice is another day of suffering for Charlie.” The challenge is part of a wider campaign on behalf of other families affected by treatment-resistant epilepsy, who have also seen benefits from medical cannabis but are unable to access it on the NHS. The campaigning group ‘End Our Pain’, which helps secure legislation for access to whole plant medical cannabis for these families, who hope that this challenge will result in positive changes for them too.

Charlie’s Family are trying to raise money by crowdfunding to enable them to continue in the fight for Charlie’s wellbeing: https://bit.ly/2WFru1a For more information or suppor t: w w w.hja.net

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Let’s talk

Individuality Individuality: it’s in our makeup. We’re home to more than 1,600 lawyers from all backgrounds, working across 27 international oﬃces. So you’ll ﬁnd diversity, individuality and inclusivity are in our nature. Share these values with us and explore a bigger world.

Get the full story at www.mayerbrownfutures.com

Americas | Asia | Europe | Middle East

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Humanforce App Makes the Workplace More Accessible for People with a Disability

without a disability. This disparity translates to an employment rate that is 28.9% lower among people with disabilities – a difference known as the disability employment gap. The disability gap is also more acute with age. While the disability gap for those aged 19-24 stands at 19%, it almost doubles to 35% when people reach the 50-64 age group. “Employers can be doing much more to make the workplace more inclusive for people with a disability – whether they’re currently in work or looking for employment,” continued Mike. “And, as we see UK pension age changes encouraging people to work beyond 64, we’re also going to see the number of people with a disability in the workplace increase… “HELPING TO A key piece INCREASE THE of the puzzle is ensuring workplace EMPLOYMENT OF technologies don’t solely work to the A MORE DIVERSE preferences of WORKFORCE” younger workers, while discriminating against workers with a disability and the ageing population.”

Humanforce has launched the first workforce management solution app to be fully compliant with accessibility recommendations, making the workplace more inclusive for people with disabilities and an ageing population. The new release of Humanforce’s mobile app complies with the Web Content Accessibility Guidelines (WCAG) 2.0 AA rating. This means it meets 100% of the recommendations for making content accessible to people with disabilities – including colourblindness and low vision. “There is an unresolved tension between integrating the most advanced technology solutions that often best meet the needs of millennial workers, w w w.seve ns tarme dia.co.uk

About Humanforce H u m a nfo rce i s a g l o ba l p rov i d e r

while also making the workplace more inclusive and diverse,” explained Mike McGee, Chief Product Officer, Humanforce. “Too often we see the former being the priority at the expense of workers with a disability and those that make up our ageing workforce.” Recent research from McKinsey found that businesses with higher diversity are more likely to achieve better financial performance. However, people with a disability are often overlooked when it comes to workplace diversity. The UK Parliament’s own research shows that there are 7.7 million people of working age (15-64 years) with a disability. Yet the unemployment rate for those who are economically active (in work or looking for work) is 114% higher than for people

of wo r k fo rce m a n a g e m e nt s o l u t i o n s fo r co m pa n i e s w ho n e e d a f l ex i b l e s o l u t i o n to m a n a g e co m p l ex wo r k fo rce s . Co m pa n i e s u s e H u m a nfo rce to m a n a g e eve r y t h i n g f ro m t i m e a n d a t te n d a nce, e m p l oye e ro s te r i n g, o n boa rd i n g a n d a va i l a b i l i t y. H u m a nfo rce a l s o h a s s t ro n g pa r t n e r s h i p s w i t h i n d u s t r y l e a d i n g pa y ro l l p rov i d e r s . H u m a nfo rce wa s fo u n d e d i n S yd n ey i n 2 0 0 2, a n d tod a y h a s of f i ce s a c ro s s Au s t ra l i a, N ew Ze a l a n d, S i n g a po re a n d t h e U K . Fo r m o re i nfo r m a t i o n : w w w.h u m a n fo r c e.co m

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STAY AHEAD WITH VAUXHALL MOTABILITY. THE LATEST MODELS. WITH GREAT SPECIFICATION. MANY WITH NO ADVANCE PAYMENT.

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Fuel economy# and CO2* results for the Grandland X range. Combined mpg (l/100km): 40.4 (7.0) – 54.3 (5.2). CO2 42.2 (6.7) – 61.4 (4.6). CO2 emissions: 113 – 103g/km. Fuel economy# and CO2* results for the Combo Life range. the Corsa range. Combined mpg (l/100km): 45.6 (6.2) – 70.6 (4.0). CO2 emissions: 99 – 85g/km. Fuel economy# Range data given has been determined according to WLTP test procedure methodology. Figures are intended for comparability purposes only. The range you achieve under real life driving battery condition. For more information contact your local Vauxhall Retailer. #Fuel consumption figures are determined according to the WLTP test cycle. *CO2 emissions figures are cycle, which WLTP replaces. The correct tax treatment is then applied. Figures are intended for comparability purposes only. The fuel consumption you achieve under real life driving compare fuel consumption and CO2 with other vehicles tested using the same technical procedures. For more information contact your local Vauxhall Retailer. Vehicles shown for illustrative is available as an additional extra-cost at full option price. Motability Scheme vehicles are leased to customers by Motability Operations Limited (Registered Company No.1373876), City Mobility Component of Personal Independence Payment (PIP), the War Pensioners’ Mobility Supplement (WPMS) or the Armed Forces Independence Payment (AFIP) and applications control of the vehicle during use and only use when safe. Compatibility and certain functionalities may differ depending on type of device and version of operating system. To check the

NEW CORSA ELITE NAV With a range of features including: • Front and rear parking distance sensors • Panoramic rear-view camera • Heated front seats with driver’s seat height adjuster • Heated steering wheel • Multimedia Navi 7-inch touchscreen with Apple CarPlay™ and Android Auto™ † Petrol Manual 1.2i (100PS)

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emissions: 115 – 108g/km. Fuel economy# and CO2* results for the Crossland X range. Combined mpg (l/100km): Combined mpg (l/100km): 37.5 (7.5) – 52.3 (5.4). CO2 emissions: 125 – 106g/km. Fuel economy# and CO2* results for and CO2* results for the Astra range. Combined mpg (l/100km): 47.1 (6.0) – 65.7 (4.3). CO2 emissions: 115 – 90g/km. conditions will depend upon a number of factors, in particular: personal driving style, route characteristics, exterior temperature, heating/air conditioning, vehicle load, pre-conditioning and determined according to the WLTP test cycle however, a Government formula is then applied to translate these figures back to what they would have been under the outgoing NEDC test conditions and CO2 produced will depend upon a number of factors, including the accessories fitted after registration, variations in driving styles, weather conditions and vehicle load. Only purposes only, and may be fitted with optional equipment. Brilliant paint, metallic or premium two-coat paint and parking distance sensors included with each lease. Tri-coat premium paint Gate House, 22 Southwark Bridge Road, London, SE1 9HB. To qualify you must be in receipt of the Higher Rate Mobility Component of Disability Living Allowance (DLA), the Enhanced Rate must be made with participating dealers between 1 July – 30 September 2020. Information correct at time of print, are subject to availability and may change. †Drivers must maintain compatibility of your device, go to www.apple.com, or www.android.com, or contact your Vauxhall retailer. ‡Feature not a substitute for driver’s concentration.

D R M E M P LOYM E N T & E D U C AT I O N

Jane Hatto

n, Director

of Evenbrea k

Disabled Candidates are Premium Candidates Jane Hatton, Director of Evenbreak, and author of “A Dozen Brilliant Reasons to Employ Disabled People” tells us more about the benefits of employing disabled staff…

WE are a diverse bunch, us disabled people, aren’t we? A diversity of skills, talents, ambitions, experience, qualifications and personal qualities. And yet we’re twice as likely to be unemployed than our non-disabled friends. There have been recent mutterings about disabled people being “not worth” the minimum wage. Many unenlightened employers are still reluctant to employ disabled people. They believe we won’t be as productive as others, and we may have more time off sick, or have more accidents, or need expensive adaptations. Sometimes even we can start believing that we are the problem. Even though, in reality we know that disabled employees are a positive asset to any workplace. I’m convinced of this, so much so that I only employ disabled people within my own business. It’s not a decision I have ever regretted – they are all very talented, conscientious and loyal people.

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So, the fears that some employers may have about employing us are based on ignorance. They believe the myths that are bandied about in the media. We are either incapable objects of pity, or work-shy benefit scroungers. I’m not saying those people don’t exist, just that I’ve never met any. All the disabled people I know are ordinary people going about their lives, who face more barriers than most. And who have much to offer society, whether inside work or outside of it. I founded a social enterprise in 2011 called Evenbreak. We work with employers to help them understand why disabled candidates are, in fact, premium candidates. There are so many reasons! Much research has been carried out around disability and employment over the years and in different countries, and they all come up with similar findings. These are the factual messages we give to employers, to counter the false and negative messages they more commonly hear:

“WE KNOW THAT DISABLED EMPLOYEES ARE A POSITIVE ASSET TO ANY WORKPLACE.”

Including disabled people in your search for talent increases your chances of attracting the right person for the job. Around 20% of people of working age are disabled or have a long-term health condition. Excluding this large group of people means you are missing out on a lot of talent.

On average disabled people are just as productive as non-disabled people - sometimes more so (consider someone using speech-totext software, who may be quicker and more accurate than their non-disabled counterpart).

On average disabled people have significantly less time off sick than our non-disabled w w w.seve ns tarme dia.co.uk

E M P LOYM E N T & E D U C AT I O N D R M

colleagues – sometimes up to 30% less.

Disabled people tend to stay in our jobs longer, increasing retention. This can save huge amounts of money in recruitment, training and managing with unfilled positions.

Disabled people have, on average, fewer workplace accidents. People who are more vulnerable to accidents take extra care to ensure our own, and others’ safety.

Disabled people and our families are consumers with valuable spending power. Up to £250 billion a year in the UK alone. Employing disabled people gives you valuable internal intelligence on how to attract this market.

Disabled people often develop the additional skills we need in order to navigate round a world not designed for us. Creative problemsolving. Resilience. Innovation. Determination. Useful skills for your business!

11.

Incorporating best inclusive employment practices within your own organisation makes Corporate Social Responsibility real. It’s not just about raising money for charity, it’s about being an ethical organisation in all its practices.

12.

There is widespread proof of the business benefits of a diverse workforce. Disability forms an important part of that (although it is often ignored).

13.

The benefits of inclusion go far beyond helping disabled people – everyone benefits. An open, diverse, flexible, ethical and inclusive culture provides a better workplace for all employees. People with hidden/ invisible impairments are less likely to feel they should ‘mask’ themselves at work, and will be far more productive if they can be their true selves. On this basis, employers should be paying a premium for disabled staff, not paying us less! The good news is that some employers are beginning to understand these benefits. They genuinely want to be more inclusive and accessible to disabled candidates.

As disabled people, the challenge is where to find these more enlightened employers. Some research we carried out recently showed that overwhelmingly, the biggest barrier that disabled candidates face is not knowing which employers will take them seriously. It’s one of the reasons I founded Evenbreak – which offers a job board for disabled candidates. Those employers who are actively seeking disabled candidates pay to advertise their vacancies there. It means that disabled candidates can identify and find work opportunities with employers who will really value their skills. When you are looking for work, make sure you look in the right places for inclusive employers, and never forget that you are a premium candidate with as much, if not more, to offer than your nondisabled fellow candidates.

www.evenbreak.co.uk @ Evenbreak

Disabled people may have additional skills which your organisation would benefit from, including different and valuable ways of thinking, challenging the spectre of ‘group think’ and complacency.

Having a good reputation for inclusion attracts more customers and the best candidates – disabled or otherwise. Many candidates look for evidence of positive social and environmental impact in prospective employers.

10.

Being a good inclusive employer raises morale amongst all your employees – 2% of people of working age acquire a disability or long-term health condition every year. If they see that you value staff this happens to, they will feel more valued.

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D R M E M P LOYM E N T & E D U C AT I O N

Madeline’s World When Madeline Stuart’s weightloss journey led to a modelling career as a supermodel, her life changed and her world opened up to other business opportunities…

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Madeline...

How has your life changed in the past five years? You can’t even imagine! I was so blessed with both my life five years ago and the life I have now, but they are very different. Before my modelling career I was lucky enough to still travel the world with my mum, we went so many places. I had the same amazing friends and boyfriend I do now, I went to the movies and shopping with them, same as I do now. However, five years on, and I am much busier! I do all the same things, but I also travel around the world twice as often; I walk fashion shows; attend events; workout six days a week; do press interviews, photoshoots, and so much more. My life has mostly just become busier and maybe a little more extravagant.

What do you think is the key to motivation for achieving your life dream? Hard work, strength and never giving up. I worked so hard for so long to get where I am today and I think the reason why I became so successful is because I was prepared to never give up. I had a passion to change the world for the better and set myself goals and I worked hard until I reached them. Motivation can sometimes be difficult, everyone has bad days here and there but I think on those days it’s important to remember how strong you are and keep your goals in mind and the hard times will pass.

What are your future goals now?

My future goals are to continue doing what I am doing, changing the world for the better. I want the world to continue to become more diverse and inclusive and I will work at that forever! I will continue to advocate, and of course model, because I believe it is such a wonderful form of advocating. I think the fashion and beauty industry has come so far with diversity and inclusion but improvements can always be made. I would love to get to a point where it is not amazing or inspirational for me to be on the catwalk but where it is simply normal.

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How do you deal with day-to-day tasks such as finance, admin or shopping for clothes? Just like any other twentythree-year-old girl, I have help from friends and family. I have a Personal Trainer, Brady who helps me at the gym everyday; my friends go shopping with me; and I have mentors who come and help me in my home to learn different skills. Then of course I have my mum! She is my best friend and inspiration, I couldn’t do life without her. She manages my career full time and has built it from nothing to what it is today. She helps me with all my social media, all the admin and the business side of things.

and feeling my best. He gets me ready for the fashion seasons and is always working me hard in the gym. I have a strict diet, especially when leading up to fashion shows, however I tend to eat healthily most of the time anyway, because I do love the healthier food and I always feel better. I allow myself to have some days where I will enjoy some ice-cream, a burger or some pizza because we all deserve a treat every now and then.

What is your fitness and healthy eating regime? I work out five to six days a week with my PT Brady, he is awesome and keeps me on track to looking

“I THINK THE FASHION AND BEAUTY INDUSTRY HAS COME SO FAR WITH DIVERSITY AND INCLUSION BUT IMPROVEMENTS CAN ALWAYS BE MADE.” Madeline

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D R M E M P LOYM E N T & E D U C AT I O N

Tell us about your work?

I model the professional fashion circuit every year and have for the past eight seasons – I walk in New York (my favourite), London and Paris. We are expanding to include Milan next season too. Outside of this, I also attend many fashion events and fundraisers for different causes. I have influencing through my social media accounts so that keeps me busy too. My fashion label, 21 Reasons Why, has been shown at New York Fashion Week multiple times, and is always one of the most enjoyable and fun shows to walk in because it is my own line. I help decide how the show will run and it’s always an amazing atmosphere! I have a dance school as well, InsideOutside Dance. I am the ambassador and help out with that all the time. We have classes on everyday of the week and it is the leading dance school for people with Disabilities in Queensland, my home state in Australia. We do performances at many events throughout the year and also host an end of year performance to showcase our year’s work. Dance has always been so important to me so it is amazing to have my own school!

and behind some industries are in diversity and inclusion. It made me want to advocate more and make changes at a larger level. It also made me see my daughter in a different light – I have always known she was beautiful, talented and amazing, but watching her work as hard as she has for this career has made me so proud of her and it has opened everyone else’s eyes to seeing what I have always seen in her.

Did you ever think you would be a businesswoman? I didn’t, I always wanted to work at a café once I finished school and that had always been my plan. It wasn’t until my career happened to take off that I realised life had a different plan for me. It was very exciting being able to shape my career into what I wanted and yes being a businesswoman has been challenging, exciting and rewarding. At the moment we are starting up the Madeline Stuart Foundation so that is very exciting too, and I hope to be able to expand even more and help a lot more people in society.

Do you do any studying or learning about business or your industry?

I leave this part to my mum, she takes care of the business side of my company… I am always so thankful for all the hard work she puts into my career. My mother runs three companies; she has her building surveying firm, which she has run for the past twenty years as well as managing my career and the dance school.

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Manager-Mum...

How has being Madeline’s manager changed your

life? It is a full time job being Madeline’s manager – on top of being a full time Building Surveryor and Carpenter by trade. When I took on Madeline’s career, my life became even busier. It also opened my eyes to how uneducated

What does this role entail?

I do most things, I negotiate her business contracts, I reach out to companies to create work, manage bookings, travel alongside her, help run her many social media accounts, network – you name it – it’s part of my job! The only thing I don’t do is make the final decisions, that is left up to her, she always decides if she wants to work with a particular brand or to go to a particular event. I learned a long time ago that if she does not want to do something there is no point trying to talk her into it, she is very strong willed and an independent lady when it comes to that… To give you an example, at the moment I want her to do a fashion week in the United States and walk the runway for six different designers but she wants to go on a camp for the weekend in Australia with forty people with Down Syndrome, where w w w.sevenstarmedia.co.uk

E M P LOYM EN T & ED U C AT I O N D R M

they will be having fun. And whilst I know it will be beneficial for her career to do the fashion event her happiness is all that matters, so camp won.

What challenges do you face?

I love being Madeline’s Manager, but as you can imagine it is hard work and can have its challenges. Being both manager and mother can be difficult at times, Madeline is extremely independent and like any twenty-three-year-old doesn’t particularly like her mother cramping her style all the time. However, I know she is always thankful for the work I put in so we always manage to work it out. At the beginning of her career, it was eyeopening to witness how discriminative the industry could be, but I had to learn how to protect my daughter in this world while also understanding that it was not always personal but business and not to take offence. I must admit, at first this was hard and I did burn a few bridges being over protective, but now I can separate myself and while still always being protective I do understand not every company is ready to diversify and I completely respect their decision and vision. Of course, I also sit back and smile as I realise that they will come to the conclusion over the next decade that diversity is the future and eventually they will open their minds and hearts to it.

At what point did you know that Madeline would make such a huge difference globally? I knew as soon as I saw the images from Madeline’s first photoshoot that she would inspire many people – I knew I had to post them to Facebook and encourage people to live fit and healthy lives. I must also admit, I underestimated the power of the Internet; I did not quite fathom the level of influence those photos would have because the post was seen by millions more than I was expecting and our lives have totally changed because of them. Like most parents, I had always thought my daughter would

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inspire and capture the world, she had always done so with everyone she met, I just knew the moment she had a stage, people would be captivated!

How have the Covid-19 lockdown and restrictions affected Madeline? The global lockdown has pretty much put Madeline’s modelling career on hold. From a business perspective we had all our contracts postponed for a year back in March, now we are just isolating like everyone else. I know at some point things will turn around as the world gets back to normal, but for the moment Madeline is keeping a low profile, having had open heart surgery twice she is very vulnerable so we are not taking chances. As for the dance school, we put that totally online within seven days of the official restrictions, and whilst it was a huge job it has been hugely successful; people are embracing it and it has grown substantially – now we have an enrolment of over two-hundred participants in our classes each week. “THEY WILL COME TO Parents and carers are so THE CONCLUSION happy and tell OVER THE NEXT me frequently how the DECADE THAT online classes DIVERSITY IS THE have given FUTURE AND their dancers direction, and EVENTUALLY THEY WILL kept their OPEN THEIR MINDS energy and positivity AND HEARTS TO IT.” levels high, so I Madeline’s Manager-Mum am very happy (Rosanne Stuart) that we have that and we can continue to help the disability community. Giving back is always high on our list of priorities.

www.madelinestuartmodel.com @ madelinesmodelling_

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D R M E M P LOYM E N T & E D U C AT I O N

6 top tips to boost your employability Finding a job is challenging for everyone however add in a disability or long-term health condition and it can become even more challenging.

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The following top tips will help make your job hunting easier: TIP 1 Identify your ‘plus’

If you are going to ‘sell’ yourself to an employer, you need to know what you are selling; i.e. you need to know what your strengths are. When you have a disability it can be all too easy to think about what you can’t do, can no longer do or find difficult to do as opposed to think about the skills, strengths and abilities that you have developed as a result of managing your disability in a world that isn’t always geared up to it. Skills such as resilience, adaptability, determination and problem solving – all skills that employers are constantly looking for.

TIP 2 Write your ‘openness statement’

For most of us, our disability or health condition isn’t going to go away. We therefore need to work out how we are going to disclose our disability to a potential employer and ask for the support we need to demonstrate our ability during the recruitment process. Writing an ‘openness statement’ that you are happy to share, makes this process so much easier. There are 3 key elements to an ‘openness statement’: 1. This is my disability / condition 2. This is the impact it has 3. This is the support / adjustment I will require during the recruitment process Examples of openness statements: I have an anxiety disorder. I become very nervous and anxious particularly in new situations It would be useful for me to have an orientation visit prior to my interview, a schedule of the day’s events and for people to be aware that I may be more anxious than others I have dyslexia and dyspraxia I have weak short-term memory and I am unable to write comprehensive notes while I am listening It would help me to have handouts in advance and be able to record conversations, I will also require additional time

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For more information about how, when, and what information to disclose about a disability, download our eBook for free at w w w.my p l u s s t u d e nt s c l u b. co m/r e s o u r ce s/

TIP 3 Position your ‘differences’ positively

Having, or acquiring, a disability or health condition may result in you having ‘differences’ on your CV such as gaps in your education, lower grades or a lack of work experience. These are referred to as ‘mitigating circumstances’ and will be taken into consideration by an employer. What is important, however, is to position these positively. For example, rather than just saying you had to take time out from your studies due to your disability state what skills you developed during this time or if you have a lack of work experience, state the strengths you have developed as a result of managing your disability/ health condition. Examples of openness statements: During my second term at university I lost 50% of my vision in a short period of time. Obviously, this was a very stressful time and I decided to take some time out. During the two years that I took out, as well as intense medical treatment, I also worked part-time in a small law firm. My confidence returned during this time and I felt ready to return to university and start a new course. In addition to developing my confidence, I have also developed resilience and adaptability in dealing with this difficult situation. For several years, I have experienced anxiety and panic attacks when under severe stress. I experienced anxiety attacks during the exams resulting in a lower mark for these modules. Since I did not fail, I was ineligible to re-sit these exams. I trust that this will be taken into consideration when reviewing my application

making adjustments for candidates including, but not limited to additional time, documents in larger font, an interpreter or a change to the format of the interview. Whilst it is difficult to know exactly what support you may require until you know what the process is, it is worth giving some thought to this so that you can advise the employer of your needs when the time comes.

TIP 5 Discover disability confident employers

It is fair to say that some employers are more disability confident than others and it is worth finding out as much as you can about a potential employer ahead of applying not least that ultimately you don’t want to work with an employer who is not going to support you. Use their website to find information on their approach to diversity in general, and disability in particular including information about how they support both their employees and job applicants.

TIP 6 Don’t give up

Rejection is part of the job-hunting process. Everyone will face rejection – and it has nothing to do with having a disability. Allow yourself a couple of hours to feel disappointed and then pick yourself up and keep on going. And, most importantly, learn from your experiences; there is no point in continuing to use the same CV or application form if it leads to rejection. Instead, you need to critically review it and identify why it may be leading to you being rejected and how you can improve it.

Fo r f u r t h e r f re e ca re e r s a d v i ce a n d t i p s, v i s i t w w w.my p l u s s t u -

TIP 4 Identify your recruitment support needs

To ace the recruitment process you may need support or changes to be made; these are often referred to as ‘reasonable adjustments’. Employers are used to

d e nt s c l u b.co m . T h i s we b s i te p rov i d e s s t u d e nt s w i t h d i s a b i l i t i e s w i t h t h e a d v i ce a n d s u p po r t t h ey n e e d to n a v i g a te t h e re c r u i t m e nt p roce s s a n d a c h i eve t h e i r ca re e r pote nt i a l.

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Making banking services accessible to all There are many reasons why people may find it difficult to access banking services in the traditional ways. When people find themselves in unforeseen personal circumstances or are limited by a physical or mental condition, it can make signing up to banking services or managing an existing account extremely stressful. At HSBC UK, we’re always looking for new ways to improve financial inclusion so that more people can access financial services in the ways that best suit them. We believe that banking should be available to everybody, regardless of personal circumstance, and we’re continuously improving the ways in which everyone can access our services.

Managing your money with dementia We pride ourselves on our work towards becoming a dementia friendly bank, removing unnecessary difficulties from the world of finances. In 2019 we won ‘Dementia Friendly Organisation – Large’, at

the Alzheimer’s Society Awards. If you’re living with reduced mental capacity, or caring for someone who is, our team are on hand to support you. We partnered with Alzheimer’s Society and Alzheimer’s Scotland on several projects to find out what works best when it comes to managing finances with dementia. We know that everybody’s situation is different, and that’s why HSBC UK offers a range of bespoke solutions. With our ‘Managing money with dementia’ guide, available online and in branch, you can understand the options that best suit your individual circumstances, whether that’s opting for a chip and signature card, instead of a chip and pin card, or requesting family oversight for bank statements.

Independence Service When managing your own finances becomes difficult, it can be extremely frustrating having to rely on someone else. We know that some of our customers want to retain a level of financial independence, while still having the reassurance of third-party oversight. The Independence Service allows a legal third-party to manage your finances, while still giving you access to a bank account – meaning you can continue to withdraw money from an ATM, do your food shopping or pay your bills. For those over 18, the service provides you with a bank account, with no lending facilities, that your appointed legal third-party can deposit funds into. Your other accounts are ring-fenced and protected, so you can enjoy financial freedom without the worry of things like overdrafts or the threat of allowing fraudsters access to your savings. Although we initially set the service up to aid those living with dementia, we quickly found it could help a wide range of customers that would otherwise have trouble managing their own finances – for example those with a gambling addiction or those with mental limitations.

Accessible banking and British Sign Language (BSL) Video At HSBC UK, we want all of our customers to feel confident and supported when dealing with us, whether that’s in branch, online, via the mobile app, by phone or by post. That’s why we provide a full suite of accessibility aids to ensure that nobody is excluded. We offer braille, large print and audio bank statements and letters, as well as talking ATMs and hearing loops in our branches. If you’re banking with us remotely, we can provide you with an accessible secure key, to access online banking, with large buttons and audio support, and a text relay service if you’re hearing or speech impaired. Our British Sign Language (BSL) video service is also there to support our hearing or speech impaired customers, offering the ability to chat to our team through a sign language interpreter, remotely or inbranch. You can access the service through a browser or through our app on compatible mobile devices. When it’s safe to visit one of our branches, in line with COVID-19 safety measures, our team will be happy to assist you connect a device.

Specialist Support Not every customer’s personal circumstances can be easily categorised or dealt with through an overarching service and some solutions may require a more focused approach. For those that are most vulnerable or need extra support in managing their finances, our Specialist Support Team is on hand to provide that extra help. With enhanced training from external organisations and charities, our Specialist Support Team is able to provide additional support for customers dealing with addiction, long-term illness or mental health problems and provide bespoke solutions in circumstances involving bereavements, unforeseen financial difficulties, or when a customer has fallen victim to fraud. We will also help sign-post customers to relevant organisations and charities outside of HSBC UK, when further support is needed.

Financial Inclusion At HSBC UK, we believe everyone should have access to financial services, no matter their circumstances. We’re always developing new ways of helping our customers, through innovative use of technology, new specialist services and advanced customer support training.

If you’d like to find out more about what we can do for you, please visit hsbc.co.uk/ accessibility for advice on accessibility and hsbc.co.uk/help/life-events for advice on managing finance through life changing events. If you’re having trouble accessing your account due to the COVID-19 pandemic and want to find the most up-to-date support in how to manage your finances during this time, please visit hsbc.co.uk/help/ coronavirus/

Maxine Pritchard, Head of Financial Inclusion & Vulnerability, HSBC UK

D R M INDEPENDENT LIVING

How can I make sure my disabled child is provided for when I die? The term ‘disabled’ can encompass a number of different disabilities; these could be physical and/or learning disabilities. People can be vulnerable for all sorts of reasons and careful thought must be given to the provisions needed to benefit them in a will. PROVIDING for our loved ones when we die is one of the most compelling reasons to make a will. If you have a disabled child this is even more important, as they will have specific and often costly needs that require special consideration.

child without any restriction. Before choosing this option, you should think about whether your child is likely to have sufficient capacity when they reach adulthood to make decisions about how they use that money. The gift would, in time, form part of your child’s estate, so you also need to think about whether your child is likely to have sufficient capacity at the appropriate time to make a will. If your child is receiving means-tested benefits, you should bear in mind that by giving an absolute gift, this would be taken into consideration in calculating benefits, which may then be lost. This therefore needs careful consideration to ensure that your child isn’t disadvantaged by your decision.

Option 2: Using a life interest trust Another possible option is to use a ‘life interest trust’. This would mean that trustees appointed in your will would look after the money you have set aside for your child during your child’s lifetime. The trustees would usually invest this money and the income produced on the investments would be available for your child for the remainder of their life. When your child passes away, the remaining money would be passed onto other individuals, who you name in your will. Bear in mind that the income your child receives will be taken into consideration when they are assessed for any meanstested benefits (the capital will not be taken into consideration). In certain circumstances, and depending on the wording of your will, the trustees can sometimes make a ‘one-off payment’ of capital to your child, for example to pay for a holiday, or buy some equipment. The amount of capital that can be used for these purposes can be restricted by the wording used in setting up the trust.

What are the key considerations?

Where will they live? What financial benefits are they already receiving? What help are other family members providing? What care plans are in place? While it may be difficult, it is also important to think about your child’s life expectancy and medical prognosis.

When all the above factors have been thought about carefully, a will can be drawn up and a number of options can be looked at to ensure that appropriate financial provision is included.

Option 1: Making an ‘absolute gift’ The will can include what is known as an ‘absolute gift’. This means that your child will receive a financial benefit that is unrestricted and that will belong to them to do with as they wish. Provisions are usually made for trustees to look after that money on behalf of your child until they reach the legal age of majority (18), but after that the money will belong to your

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“A WILL CAN BE DRAWN UP AND A NUMBER OF OPTIONS CAN BE LOOKED AT TO ENSURE THAT APPROPRIATE FINANCIAL PROVISION IS INCLUDED.”

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INDEPENDENT LIVING D R M

Option 3: Using a discretionary trust Another option to consider is a ‘discretionary trust’. The trustees would look after the assets (property, money, etc) within the trust and they are given absolute discretion to use both the income and the capital for your child’s benefit. There can also be other beneficiaries (perhaps other children and grandchildren) who will be able to benefit from the trust. If you set up this kind of trust in your will, you would be asked to provide a letter of wishes addressed to the trustees that you have chosen, which sets out how you would wish them to make decisions about the assets in the trust. On the death of your disabled child, any assets remaining in the trust can be distributed to the other beneficiaries.

Tax consequences When setting up any sort of trust in a will, you should take advice on the tax consequences of the various options to ensure that you understand the advantages and disadvantages of any choice that you make. There is a particular sort of trust that can be advantageous to use, which is called a ‘Vulnerable Beneficiary Trust’. This trust is recognised by HMRC and gets special tax treatment. The definition of a ‘vulnerable beneficiary’ and the various tax consequences are clearly set out on the GOV.UK website.

In these trusts the vulnerable beneficiary (the disabled child) is entitled to receive the benefits from the trust during the remainder of their lifetime. Only a small amount of assets in the trust can be used for the benefit of someone else while the disabled person remains alive. The other beneficiaries would be entitled to what remains in the trust after the death of the disabled child. When the disabled child dies, it should be noted that the assets in the trust will be treated as part of their estate for inheritance tax purposes before they are distributed to the remaining beneficiaries of the trust.

Relying on your other children You may be considering relying on your other children to look after their disabled brother or sister after you have died, and therefore you don’t plan to leave anything to your disabled child in your will. This is a dangerous option and not one that is to be recommended. You may feel that your disabled child already receives means-tested benefits and so doesn’t require anything else. The state may take a different view, however, and it leaves your estate open to a claim being made under the Inheritance (Provision for Family and Dependants) Act 1975 for reasonable financial provision to be made from the estate for your disabled child. This would be costly and not in the best interests of anyone. It is always best to make some provision for a disabled child, rather than to leave them out of the will altogether.

Some other considerations When giving instructions for your will, you should give special thought to the choice of trustees and guardians for your child, as they will have onerous duties and responsibilities after you have died. You should also think about where the child will live and what practical arrangements will need to be in place. If they are to remain at home, your other children may have to wait a long time for their inheritance until after your disabled child has died and the property has been sold. Finally, it should be noted that you can set up a trust to benefit your disabled child in your lifetime, as well as by will. This enables grandparents and other close relatives to benefit your child either during their lifetime or by leaving gifts in their wills that can be added to the trust for your child.

Seek specialist advice This is a complicated area of law, and if financial provision needs to be considered for your disabled child then it would be strongly recommended to take specialist advice from a qualified practitioner, for example a full STEP member, who will have specialist qualifications and experience in this area. They will be able to discuss the family circumstances to ensure the right option is chosen. Patricia Wass TEP is a full STEP member and a consultant at Enable Law, Plymouth www.step.org

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Brain Injury Community Service

hospital following injury or illness A child can be referred at any point following their injury or illness. For some children this may be some years after the initial event .

How the service works

Discharge from Clinical hospitalscreening following injury orspecialist illness A clinical

Supporting children and young people with acquired brain injury in the community

Brain Injury Community Service

from the Brain Injury A child can be referred Community at any point Service following will with theirmake injurycontact or illness. the child/family tothis For some children complete a detailed may be some years telephone interview. after the initial event .

Visits and Clinical screening telephone calls

Supporting children and young people with acquired brain injury The Children’s Trust is the UK’s leading charity for in the community children with brain injury. We work with children and

A clinical specialist Following the initial from the Brain Injury screening, clinical Communityour Service specialist visitwith will make may contact the child and their child/family to family, either at home complete a detailed or in school.interview. Contact telephone will also be made with other professionals Visits involvedand in the child’s telephone calls care. Following the initial screening, our clinical Onward referral specialist may visit If the child and has needs their which require additional family, either at home support, our clinical or in school. Contact specialist make with will alsowill be made the necessary onward other professionals referral intoinlocal involved the child’s community services, care. or our specialist multidisciplinary team.

young people aged 0-18 from across the UK with acquired brain injury, neurodisabilities and complex health needs delivering rehabilitation, education and community services through a highly skilled team. The Children’s Trust is the UK’s leading charity for children with brainCommunity injury. We work withprovides children and Our Brain Injury Service young people aged 0-18 from across the in UKthe with goal-orientated rehabilitation delivered child’s acquired brain injury, neurodisabilities and complex environment. health needs delivering rehabilitation, education and community services through highly Delivered by specialists from a arange ofskilled clinicalteam. backgrounds, we work with the child and their family Our BrainonInjury Community Service focusing the needs which result fromprovides an acquired goal-orientated rehabilitation delivered in the child’s brain injury. These may be social, emotional, environment. cognitive, communicative and behavioural needs. Delivered by specialists from a range of clinical backgrounds, we work the child their family Our ultimate goal is to with maximise theand child/young focusing on the needs which result from an acquired person’s participation in their everyday life brain injury. These may be social, emotional, cognitive, andcentred around the We providecommunicative a range of support behavioural needs. child or young person, including clinical screening,

advice and onward referral completely free-ofOur ultimate goal is and to maximise the child/young charge for children young people with an acquired person’s participation in their everyday life brain injury, including those with a concussion. Subject to funding we also offer community-based We provide a range ofskills support centred aroundby the neurorehabilitation packages delivered our child or young person, including clinical screening, multidisciplinary team. advice and onward referral completely free-ofcharge for children with an acquired This service providesand theyoung initialpeople support needed when a brain injury, including those with a concussion. child is discharged from hospital to home and can also Subject to funding weinitial also offer be accessed after an injurycommunity-based or illness which, in some neurorehabilitation skills packages delivered by our the cases, can be many years later. This may be because multidisciplinary effects of the injuryteam. may not be obvious for some time. This service provides the initial support needed when a child is discharged from hospital to home and can also Registered Charity No. 288018 be accessed after an initial injury or illness which, in some can1be many years later. This may be because the DRcases, Advert_17.06.indd effects of the injury may not be obvious for some time. Registered Charity No. 288018

Onward referral

If the child has needs which require additional support, our clinical specialist will make the necessary onward referral into local community services, or our specialist multidisciplinary team. Community-based neurorehabilitation skills packages Delivered by The Children’s Trust Brain Injury Community Service, skills packages include: • Understanding acquired Community-based brain injury (ABI) neurorehabilitation • Developing learning skills packages skills • Developing study skills • Attention Delivered by and The concentration Children’s Trust Brain management Injury Community • Memory management Service, skills packages • Fatigue management include: • access to • Developing Understanding acquired community/leisure brain injury (ABI) • • Developing Developing identity learning awareness skills • Developing • Developing study skills • independence Attention and in ABI • Developing social concentration and interaction skills management • • School-to-school Memory management support • transition Fatigue management • ABIaccess safetyto • Teenage Developing community/leisure • Developing identity awareness • Developing independence in ABI • Developing social and interaction skills • School-to-school transition support • Teenage ABI safety

Additional support delivered by local community services The child’s needs will be met by services in their area.

Long-term Our long-term register provides systematic monitoring of a child’s needs at key stages.

Meet Lewis After a serious illness, 15 year old Lewis was left with a brain injury affecting his movement, communication and cognition. Lewis’ return to school was a struggle, his extensive fatigue and memory difficulties affected his grades and his difficulties with communication affected his friendships. He became increasingly frustrated and socially isolated. The Children’s Trust Brain Injury Community Service worked with Lewis to support his transition to college. Lewis worried about making new friends, coping with college demands and also the support he would receive. Lewis, his family, college staff and local therapists were supported by the team’s Occupational Therapist and the Speech and Language Therapist to understand his difficulties and improve his skills. College is going really well for Lewis. He feels more confident communicatively and manages his fatigue, allowing him to attend college and still have the energy to do things at weekends. He has the right support in his lessons and is positive about his future. He hopes to go onto university and is keen to learn new skills to live independently when he is older.

Making a referral is simple and can be made by anybody involved in the child’s care. www.thechildrenstrust.org.uk/bics bics@thechildrenstrust.org.uk 01737 365 864

Has your child suffered a concussion, nasty bump to the head or any type of acquired brain injury? If the answer is yes, the Brain Injury Hub website can also provide you with helpful information, advice and tips on supporting your child. What is the Brain Injury Hub and how can it help you? • A website created by doctors, therapists, brain injury specialists and educational professionals. • Includes information on every stage from being in hospital, back at home and school. • Real stories from other families affected by acquired brain injury. • Rehabilitation tips that you can do at home to support a child with acquired brain injury. • The information is based on evidence-based research. • Approved by NHS Information Standard.

braininjuryhub.co.uk

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INDEPENDENT LIVING D R M

Moving during a Lockdown? The economy has taken a downturn, since the Covid-19 pandemic and the government are supporting as many of those affected, with advice, services, and financially too. Amongst the advice is to not move home during this time of isolation or lockdown in a bid to flatten curves and to save lives. While the world is on hold, including your move, here are some things that may support you through this uncertain time…

If you have been planning that big step into your independent home away from a full time carer or your family, and your move has been delayed, don’t be disheartened as you can use this time to connect with the people you currently live with – make memories and get some advice for living independently. It is a good opportunity to further plan and prep. Visualise how you wish your home to be… Consider how you will place your furniture in your home. Do some research into the area you are moving to and make plans for the future. You can even get creative

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and draw out some pictures or do a vision board of wallpapers and paint colours. Maybe your home is fully decorated, in which case you can consider pot plants or artwork you wish to add to make it your own style.

If you are moving into a complex or a communal home environment, then you need to discuss any changes that affect you with your chosen scheme or the necessary legal representatives. As we are all in the same boat with the effects of Covid-19 pandemic, there are processes in place that will support you – you just have to reach out to the people that can help.

If there are financial changes for you as a result of the current climate, be sure to discuss this with your financial advisors and those supporting your move.

If you are now unable to make a move that you have been planning, you may be feeling disappointment, lack of independence and low in mood… if these feelings persist be sure to speak with a therapeutic professional to support you through this time.

For full information and guidance for people buying or selling private residential homes which they intend to live in, and for of ficial Government advice on home moving during the coronavirus (COVID -19) outbreak visit: w w w.gov.uk/guidance/ government - advice - on - home moving - during -the - coronavirus covid -19 - outbreak

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NEED HELP GETTING ON THE PROPERTY LADDER? Shared Ownership with Clarion Housing could be the answer for you. Shared Ownership is an excellent way to take your first steps to becoming an owner of a stylish new home. At Clarion Housing we have a range of homes across the country. Properties range from being available to purchase off-plan to being ready to occupy immediately. What is Shared Ownership?

SPOTLIGHT ON...

The Albert Embankment Collection A rare opportunity to purchase a home through Shared Ownership and fulfil aspirations to live in the heart of London. Albert Embankment covers a stretch of the River Thames between Vauxhall Bridge and Lambeth Bridge. Luxury apartments are available within The Dumont, one part of the centrepiece of the exclusive Albert Embankment Plaza built by St James (part of the Berkeley Group). Top specification and high quality interiors are all as specified by St James to maintain the high value impact. It is a neighbour to iconic London sites including the Palace of Westminster, the London Eye and St Thomas’ Hospital at Westminster Bridge. • Central Zone 1 location

• Concierge

• Leisure and entertainment on your doorstep

• Walk to Vauxhall Station (Underground and Overground) in just a few minutes

With Shared Ownership, you buy a share of your home – as much as you can afford – starting from as little as 25% and rising up to 75% of the property’s value. You then pay subsidised rent to Clarion Housing on the remaining share of your home. When you wish to, you can buy a bigger share of the property until you own it outright. This is known as staircasing.

How much deposit do I need? The deposit required for a Shared Ownership mortgage is a lot lower than if you were purchasing the property outright. This is because it is calculated on the initial share you are purchasing, rather than on the full value of the property. Mortgages are available from as little as 5% of the share value.

JUST ONE SPACIOUS STUDIO APARTMENT REMAINS £116,250

(from 25% min. share of the full value £465,000), £5,813 min. deposit.*

ONLY A FEW ONE BEDROOM APARTMENTS AVAILABLE FROM £135,000 (from 25% share of the full value £540,000), £6,750 min. deposit.*

Don’t miss out on this central London Shared Ownership opportunity. Get in touch today to discuss availability.

Visit myclarionhousing.com/sharedownership for more information

Shared Ownership from Clarion Housing As the UK’s largest housing association we are here to help you find and secure your new home. Clarion Housing has homes available in the city and in the countryside to suit the needs of first time buyers... N E Re W se RE rv LE e AS to E da S y

Windsor Apartments Battersea, SW11 4EJ Stunning modern apartments at a prestigious development on the edge of Battersea Park in Wandsworth available for Shared Ownership. An impressive collection of one and two bedroom homes built by St William Homes (part of the Berkeley Group). Centred around beautiful landscaped gardens benefit from high quality finishes, spacious private balconies and all that this amazing city of London has to offer. Prices from: £150,000 for a one bed apartment

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25% share of full price £600,000)

Potters Warren Suffolk, IP30 9DG

The Ridge at Rayne Road Braintree, CM7 2DA

Potters Warren offers two, three and four bedroom houses to buy through Shared Ownership, built by Crest Nicholson. Homes are set in a semi-rural, village location surrounded by open space. Potters Warren is also close to amenities. You can reach Elmswell station within 10-15 minutes. The area is well-connected on the Cambridge line.

Well-presented two bedroom apartments for Shared Ownership at this popular development by Redrow Homes. Set in a peaceful location surrounded by open spaces including ponds and a trim trail. Rayne Road is close to outstanding schools and excellent local amenities. Braintree High Street is just 15 minute walk away.

Prices from:

£87,500 for two bed house

(35% share of full price £250,000)

0300 100 0309 |

Prices from: £87,500 for two bed apartment (35% share of full price £250,000)

Find out more shared.ownership@myclarionhousing.com

*All train times from nationalrail.com. To find out more about Shared Ownership homes from Clarion Housing please visit myclarionhousing.com/sharedownership. Eligibility checks and Terms & Conditions apply. Speak to our sales team for further details. Images displayed may not correspond exactly to the available properties described. Values and availability are correct at the time of going to print. Clarion Housing Association Limited is a charitable Community Benefit Society (FCA No. 7686). Registered with the Regulator of Social Housing (No. 4865). VAT No. 675 6463 94. Registered office: Level 6, 6 More London Place, Tooley Street, London, SE1 2DA. Clarion Housing is part of Clarion Housing Group.

Life with Brittle Bones Disease Monique shares her story with DRM… An average day:

I wake up in the morning like everybody else, except I do a quick check to make sure I haven’t broken anything – though it’s usually more likely that I’ve dislocated. I get dressed, and do my make-up, but it’s really important that I don’t rush as many times I’ve broken bones and dislocated badly due to rushing. I then plan my day making sure I have my medications, food and water in my bag and all my tech is charged – as I work as a model and I am the co-founder and director of an arts organisation. I’m

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usually out and about working, doing shoots, events, meetings, travelling… it never stops! I compete in competitions too, as in my spare time I train in ballroom and Latin wheelchair dance – I’m a national and international dance champion in my class, so I’m always on the go. In the evenings I would usually cook myself dinner which is something I love doing, I love experimenting with flavours and different types of food, even if it means I’m cooking late at night.

Photographer: Aaron Cheeseman @Ched53 | Monique’s Agent: www.zebedeemanagement.co.uk

D R M INDEPENDENT LIVING

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INDEPENDENT LIVING D R M

I then go for a soak in the bath or have a hot shower to help with pain. I try to unwind by playing XBOX and chatting with friends as it’s a little bit of an escape for me – I do love gaming! I usually play until the early hours of the morning because I suffer with insomnia and can’t usually sleep until 2am, unless I have really pushed myself during the day and become exhausted.

Some life challenges: Firstly, I love to travel, so the biggest challenge I have is access. I have an electric wheelchair and you would not believe the amount of people that think that they can just pick it up to lift up flights of stairs or to throw in the back of the car even when I tell them it’s over 160kg in weight. My favourite part of modelling and dancing is that I get to travel to new places. As many people know having a physical disability where extra access is needed, and it’s very difficult to arrange a journey without having to call several companies to make sure access is available and correct. I find it crazy that it is literally easier for me to get a flight to another country than it is to arrange to get a train the night before I travel as a lot of modelling jobs are confirmed last minute. Due to me always being in pain I have found that just by being busy really subsides the pain, which means less medication to take especially as I drive and some of my medication dosage isn’t recommended to take while driving. I usually have a hot bath in the evening with Epsom salts and some sort of Lush bath bomb to really be able to relax my muscles and subside the bone pain, but I constantly have pain during the day. Having a bath at night cuts out the rushing in the morning. At times, I find it difficult to do everything so carefully but not slowly, and without putting myself through extra pain, dislocating or breaking bones.

Remain positive: I’m not really sure how I stay positive, I just tried to do my best in every aspect w w w.seve ns tarme dia.co.uk

of my life and don’t really see my life as being hugely different to anybody else’s. Even though this is the case and I may have to juggle a lot more than others, I just find I’d rather spend my time enjoying life and helping others do the same and not to ponder and dwell on something that I can’t change and has made me the person I am today. Positivity is something that I strive to teach others who have disabilities, differences or difficulties – as over the last two years of modelling I have found that our imperfections make us perfect and in many ways being different is a great thing. Everybody has differences, but if you can use that in a positive light then I feel there will be less negativity in the world.

hardest in everything I set out to do, and I would never stay still and I would get out and see the world more. Though I was quite young when this happened I knew what I needed to do to be able to feel like myself again. Even to this day I’m never home, I never stay still, I’m always travelling somewhere, and I’m so happy to meet and help others. I wouldn’t say I live my life like I will die tomorrow, but I definitely live my life so I don’t feel like I have any regrets.

Life experiences:

Future aspirations:

When I was a baby, my mum was told I would not make it to my first birthday, which I could never know how that felt for my mother to hear that her firstborn wouldn’t even live for very long. When I was old enough to be told this, without even realising it I always lived life to the fullest. I defied all odds and on top of that, I was extremely happy with who I was. As a youngster I was always bubbly and wanted to do everything everybody else did.

At the moment I’m happy with the opportunities that I’ve been given to be a part of the change towards more diversity and true representation of people with disabilities in all forms of the media. I just want to be able to continue to do this maybe on a worldwide scale, and to be able to help so many people follow their dreams and continue the legacy of true representation in the media.

“I’M A NATIONAL AND INTERNATIONAL DANCE CHAMPION IN MY CLASS, SO I’M ALWAYS ON THE GO.” I had major operations, which hospitalised me for months – I wasn’t able to go out, I wasn’t able to do anything! I missed a lot of school. I became very secluded, unhappy and felt quite alone, because nobody was going through what I was going through and nobody could really understand. I always thought to myself that as soon as I got better I would try my

“OUR IMPERFECTIONS MAKE US PERFECT.”

Follow your best life path: No matter how much good you do in the world, it is very likely that there will be negative people and I would advise to ignore the negative comments but to strive to educate everyone including those negative people, as they can never say they didn’t know, that they weren’t educated. If they don’t want to change then don’t waste your time anymore. Only positivity should continue with you on any journey! Try to make sure that your positive life path gives out positivity to others and to always play it forward. We all want the next generation to be better than the last don’t we?

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My Life Alfie has Cerebral Palsy; he shares his story with DRM…

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Photographer: Aaron Cheeseman @Ched53 | Alfie’s Agent: www.zebedeemanagement.co.uk

D R M INDEPENDENT LIVING

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INDEPENDENT LIVING D R M

My Day:

Day to day life can vary depending on whether I’m at college, home or working. It also varies according to who is supporting me. I live at home with only four hours a week of support for personal care and eight hours a week for social care. This means I rely heavily on my dad Ian, who gave up his job to be my carer! However, the start of each day is always the same, I’m coerced out of bed (I’m not a morning person!) and helped with showering and dressing. The hair is the most important part of the process and dad is entrusted with this job. I have very definite ideas about what I wear, so dressing my best sets me up for the day ahead. If it’s a day where I’m modelling or working as a supporting artist then the start can be very early indeed, but the hair and fashion never get compromised! Those days are the most interesting, as the job is so varied – I could be in London, Manchester or Liverpool and it’s a great way to meet new people and hear their stories. If it’s a college day, I get dropped off and then I find my friends and we chill before class. I’m on the second year of a drama course which I’m really enjoying. If it’s a day where I have my P.A then I’ll go to the cinema, take a trip out to the seaside or go shopping. We have a similar sense of humour and are a similar age, which makes it easy to be with her. When I get home, there is always physio to do. I’m not a willing participant in this – I guess it’s like going to a gym – painful and laborious, but necessary. I like to finish the day by checking Tinder and then bingeing on a box-set.

My Challenges: Being dependent on others – particularly my parents – is something I find difficult. I want to be able to do everything by myself, but the reality is that I am dependent on others for all elements of self-care, and I need assistance with most things. My handfunction has become more limited over time, meaning even picking up

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a can of drink has become difficult. I also have a strong ‘startle reflex’ which can become tiring as I feel I have to apologise to people for jumping, which in turn makes them jump. I’d like to live independently, but I know that the life I can have at home is going to be more comfortable than striking out alone at this age.

believe my life was worthless and that I was ugly and unworthy. When I started to get better (which took time) I decided I wanted to prove to the bullies that I could have a life they could never achieve. I was also so sick of the pity that I encountered because of my disability. So, I aimed high. It is possible to be disabled and attractive! I made the decision to pursue modelling. This has given me great confidence and made me more resilient.

“DRESSING MY BEST SETS ME UP FOR THE DAY AHEAD.” My Mindset: First of all – I don’t always remain in a positive mindset! I don’t want to peddle this idea that ‘look at me I’m disabled – I’m a model and my life is great…’ because I have significant periods of low mood and anxiety too. I don’t think it’s helpful to push the idea that “I’m alright-why aren’t you?” I find that sharing my worries and talking through my problems early on helps. I’ve learned not to let things spiral out of control before I seek help. I also think it helps to surround yourself with positive people. People who believe in change make change happen. I try my best now to acknowledge that there are always going to be problems that I face-but the way I approach those problems is where I can be successful. I believe I will overcome all that life throws at me mainly because I know I won’t have to do it alone if I don’t have to.

My Outlook: I was severely bullied when I was younger. I lost a lot of weight and became quite frail. I had started to

There are many more jobs that you miss out on than get but when you do get cast for a part or a photoshoot it is exciting and terrifying in equal measure.

My Future: I’d like to be the first male powerchair user who models for a major fashion house or high street chain. I’d also like to partner with a charity who supports male mental health and add my voice to the mix. It frustrates me that there are few services out there which specifically support people with disabilities to achieve positive mental health.

My Advice: Don’t believe the hype and live honestly. We live in a world where everyone is selling an image. It’s easy to think everyone else’s life is better or easier than our own. Live honestly! Say when something isn’t right, and if you can’t fix it yourself speak out and get help.

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0800 027 5058 www.alliedmobility.com

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MOBILIT Y & MOTORING D R M

Moving from a car to a Wheelchair Accessible Vehicle: My experience on the Motability Scheme Blogger Sarah Alexander has been a Motability Scheme customer for over ten years â&#x20AC;&#x201C; Sarah has multiple chronic conditions and has found that as her needs have changed so has the vehicle which suits her best. Here, Sarah reflects on her experience on the Motability Schemeâ&#x20AC;Ś

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D R M M O B I L I T Y & M OTO R I N G

“Let me take you back to my first ever car; I passed my driving test at age nineteen, I’d learnt in a manual car so wanted my first one to be a manual. I’d only driven two hours a week during my lessons and never considered another option. I was happy driving a manual, I enjoyed it and I was desperate for a Ford Focus. My mum came to my local dealership with me, we had an appointment with their Motability Scheme specialist and I test-drove my dream car. I fell in love with it right away and signed the contract there and then. I had that car for three years and loved it… Well, that was if I didn’t drive it for longer than a couple of hours. I had pain and dislocations that happened a lot more regularly after I had been driving for a while. I didn’t realise that shifting the gearstick and the constant moving of both feet whilst driving was putting a lot of pressure on my joints: My knees, ankles and shoulders suffered quite a lot and when it was time to get a new car, I wasn’t sure what to do. When it was time to choose my next car I went back to the same dealer; I had a great rapport with the Motability Scheme specialist and explained the difficulties I was having. I was worried that they’d advise me not to drive or

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drive less, which wasn’t an option as I was at university at the time. However, they suggested I try an automatic car with cruise control for longer journeys on the motorway. I’d never considered an automatic before but it certainly seemed like it’d help with my driving issues.

IWE HAD AN APPOINTMENT WITH THEIR MOTABILITY SCHEME SPECIALIST AND I TEST-DROVE MY DREAM CAR. The night before I picked up my automatic, I had a nightmare that I was going to crash my new vehicle because I’d only ever driven an automatic during the test-drive and I wasn’t sure if I could do that all the time, without supervision. When I went to pick up my new car, the salesperson asked me if I was excited, I explained that I was, but that I was also really nervous as I was used to driving a manual. She took me straight out to the car, showed me all the gadgets, rearranged the mirrors

and seat, and took me for a drive to get me comfortable behind the wheel of my new car. After I dropped her back off at the dealership, I felt so much more confident and couldn’t wait to get home and show everyone my new wheels. Driving the automatic was so much easier. I couldn’t quite believe the difference. Albeit, my health declined; I couldn’t use my crutches anymore as my shoulders weren’t stable enough and would dislocate. Pain and fatigue meant that I was spending more time at home because I couldn’t go out using my walking aids. With help from medical professionals it was decided that I would start to use a manual wheelchair that would require someone else to push as I wasn’t strong enough to do it myself. I found this helped me get out more, but it caused me a lot of frustration as I always relied on someone else. After talking to my medical team, a powerchair was suggested and I thought all my prayers had been answered. I could go out, I could do it alone, I relied on nobody else and it wouldn’t cause me pain. I called the Motability Scheme and explained that I was getting a powerchair but it wouldn’t fit in my current vehicle, and I asked them what I should do. They gave me a lot of advice w w w.sevenstarmedia.co.uk

MOBILIT Y & MOTORING D R M

and after some research it was apparent that I would need a boot hoist. The hoist worked well for about a year or so but then I was diagnosed with a new condition that affects the nerves in my arms and hands. I lost all strength in my hands and couldn’t use the carabiner clips on my hoist. I remember sitting in my living room crying because I’d lost my independence again. Again, I called the Motability Scheme and they were fantastic. They introduced me to Wheelchair Accessible Vehicles (WAVs). I had an assessment of my needs and we decided that a Citreon Berlingo with a ramp would be my best option. The straps and belts (tie-downs) that are used to lock my powerchair into place were all adjusted to make things as easy as possible for me. I have had my WAV for about a year and it’s fantastic. I find it easy to get my wheelchair in and out of, I enjoy going out and I feel confident doing so on my own. Every step (or wheel) of the way, every time my condition has worsened or I’ve needed advice, the Motability Scheme has been there and supported me one hundred percent and I am

extremely grateful for how they helped me keep my independence.” Read more from Sarah at www.fromsarahlex.com

Am I eligible? You need to be in receipt of one of the following allowances and have at least 12 months of your award remaining:

Higher Rate Mobility Component of Disability Living Allowance Enhanced Rate Mobility Component of Personal Independence Payment War Pensioners’ Mobility Supplement Armed Forces Independence Payment

If you think the Scheme could be right for you, and you would like to find out more, you can visit the Motability Scheme website at www.motability.co.uk or you can call one of their friendly advisors on 0800 093 1000.

About the Motability Scheme The Motability Scheme enables you to exchange all or part of your higher rate mobility allowance to lease a car, Wheelchair Accessible Vehicle, mobility scooter or powered wheelchair. A standard lease is over three years (or five years for a WAV) and payments are simply deducted from your higher rate mobility allowance every four weeks, then paid directly to Motability Operations Ltd. by the Department of work and Pensions (DWP) or Veterans UK. Every lease is all-inclusive, which means everything listed below is included in the price you pay. So, the only running cost you have for your brand new vehicle is for fuel. Insurance cover Servicing and maintenance Many adaptations at no extra cost Full RAC breakdown assistance Up to three named drivers for cars and WAVs (this doesn’t have to be you) Tyre, battery and windscreen repair Support from a dedicated UK based Customer Services team

www.motability.co.uk

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LEGENDS AREN’T BORN.

JEEP RANGE AVAILABLE ON THE MOTABILITY SCHEME FROM £95 ADVANCE PAYMENT* For more information or to book a test drive visit www.jeep.co.uk/motability or visit your nearest Jeep retailer.

THEY’RE MADE.

Fuel consumption figures for Jeep Compass and Renegade in mpg (l/100km): Combined 29.4 (9.6) - 48.7 (5.8). CO2 emissions 225 – 151g/km. Fuel consumption and CO2 figures are provided for comparative purposes only and may not reflect real life driving results, which will depend upon a number of factors including the accessories fitted (post-registration), variations in weather, driving styles and vehicle load. Only compare fuel consumption and CO2 figures with other cars tested to the same technical procedure. *Jeep Compass and Renegade available on the Motability scheme. Models shown: Jeep Compass 1.4 MultiAir II 140hp Night Eagle (with additional bi-colour paint @£400). Available on the Motability Scheme from £695 advanced payment. Jeep Renegade 1.0 GSE T3 120hp MT 4x2 Night Eagle. Available on the Motability Scheme from £95 advance payment. Vehicles only available through Motability accredited participating Jeep retailers and are not available in conjunction with any other offer. Subject to orders being placed between 1st July and 30th September 2020. Terms & Conditions apply. Offer may be varied or withdrawn at any time.

Take the chance out Take the chance of going out without of going out with AccessAble AccessAble

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To end all the phone calls, the To end all the phone calls, the googling, the stress, the frustration googling, the stress, the frustration – to get the answers to all those – to get the answers to all those accessibility questions. accessibility questions.

Visited In Person Visited In Person

Our team of trained surveyors visit Our team of trained surveyors visit everywhere in person, from hotels everywhere in person, from hotels to stadiums, highhigh street shops to stadiums, street shops to hospitals, universities to open to hospitals, universities to open spaces everything in between spaces and and everything in between collect of pieces they they collect 100s100s of pieces of of information because we know that information because we know that information about information about •

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parking spaces

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Once collected, the information is Once collected, thebefore information thoroughly checked beingis thoroughly checked before being published on our website and App, published on our website and App, which everyone can use for free. which everyone can use for free.

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AccessAble’s AccessAble’s Travel Tips

Travel Tips Culture, colours, mouth-watering local cuisine,colours, a guilt-free opportunitylocal to shop Culture, mouth-watering cuisine, a guilt-free opportunity shop and take shameless selfies…tothere’s and takeofshameless selfies… there’s plenty reason why we travel. But, plenty of reason why we travel. But, for people with accessibility needs, a for with accessibility needs, fairpeople bit of planning often needs toatake fair bit of planning often needs to take place before we can indulge in our new place before we can indulge in our new traveller experiences; it’s not always traveller experiences; it’s not always easy to jump on a plane, cart baggage easy to jump on a plane, cart baggage to numerous hotels or go to a popular to numerous hotels or go to a popular touristdestination destinationonon the secretly tourist the fly,fly, secretly praying that there’s an abundance praying that there’s an abundance of of accessiblefacilities facilitiesonon offer. accessible offer. If you’re a disabled person and looking If you’re a disabled person and looking to check toplan planyour yournext nextadventure, adventure, check out our travel tips below, and get out our travel tips below, and get some some accessible someinspiration inspirationforfor some accessible destinations here in the UK along destinations here in the UK along the way – remember, there’s plenty the way – remember, there’s plenty of Access Guides available on the of Access Guides available on the AccessAble website and App! AccessAble website and App!

Do your Research

As much as most of us would love to, As much as most of love to, taking an impulsive tripus to would an unfamiliar takingisan impulsive an unfamiliar place difficult if you trip havetoadditional place is difficult if you have additional requirements. Wheelchair access, hearing loops, large print menus and requirements. Wheelchair access, lowered desksprint are yet to beand hearingbooking loops, large menus guaranteed anywhere in this or lowered booking desks arecountry yet to be abroad, and no-one wants a ruined trip guaranteed anywhere in this country or due to a lack access. abroad, andof no-one wants a ruined trip Use the AccessAble website and App due to a lack of access. to check accessibility information on

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everything from walking distances and accessible toilets, to parking and everything walking distances hearing loopsfrom at over 70,000 places and accessible toilets, to parking and across the UK.

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hearing loops at over 70,000 places Arrange Assistance in across the UK. Advance

Arrange Assistance in

If you’re travelling by coach, plane Advance or train and you need assistance to If you’re travelling by coach, plane access your chosen transport method, or train and you need assistance to be sure to contact the operator at least access your chosen transport method, 48 be hours in advance of your trip to let sure to contact the operator at least them your of needs andtohow 48 know hours about in advance your trip let they can help you. them know about your needs and how they can help you. Ensure you’re Insured

Ensure you’re Insured Protect yourself against hefty cancellation charges, expensive Protect yourself against hefty cancellation charges, expensive equipment repairs and unexpected equipment repairs and unexpected medical bills by taking out travel medical bills by taking out travel insurance. Be sure to declare all preinsurance. Be sure to declare preexisting medical conditions andallmake existing medical conditions and make sure you have cover for any mobility sure you have cover for any mobility equipment that you’re travelling equipment that you’re travelling with. Specialist insurers dedicated to with. Specialist insurers dedicated to covering pre-existing conditions can covering pre-existing conditions can offer competitive quotes, and some offer competitive quotes, and some insurance comparison insurance comparisonsites sitesnow now offer the ability to search offer the ability to searchfor forinclusive inclusive insurers. insurers.

Protect your Protect yourEquipment Equipment

If you’re using a awheelchair, If you’re using wheelchair,power power chair, mobility scooterororother other chair, mobility scooter equipment travel,carry carryout outany any equipment to to travel, repairs needed beforeyou yougo go repairs needed before so that it’s in the best condition so that it’s in the best condition possible, If you’ll separatedfrom from possible, If you’ll bebeseparated your equipment duringtransit, transit,do do your equipment during everything you can to minimise any everything you can to minimise any potential damage. This might include potential damage. This might include keeping any removable parts with keeping any removable parts with you, such as wheelchair cushions, you, such as wheelchair cushions, and labelling your equipment with andclear labelling your equipment with be instructions on how it should clear instructions on how it should be handled. handled.

Know your Preferences

Know yourwhat Preferences No matter you’re after; from a

Noboutique matter what after;orfrom a hotel,you’re glamping, trusted chain tohotel, a kooky café with boutique glamping, orarttrusted plastered walls café or suiting up for a chain to a kooky with artsteak house plastered wallsserenade; or suitingknowing up for awhat steak house serenade; knowing what

We wish you the very best of luck on make the planning process much make the planning process much We wish you the very best of luck on your travel journey, and hope these faster (and more enjoyable!) faster (and more enjoyable!) . your travel journey, and hope these tips help you to make the most of it! There’s nothing quite like treating a There’s nothing quite like treating a tips help you to make the most of it! friend, family member or significant friend, family member or significant other to an inclusive evening based on other to an inclusive evening based on your tastes! your tastes!

Don’t be Afraid Afraid Don’t be

What’s our number numberone onetravel traveltiptip What’s our to to disabled adventurers? disabled adventurers? Don’t let let the theneed needfor foraccess accessand and inclusivity scare inclusivity scareyou youinto intonot notspreading spreading – – your wings wings and andgoing goingon ona ajourney journey wherever that may be. wherever that may be. you have aa IfIf you have aaglowing glowingreview reviewofof restaurant, events venue, hotel, restaurant, events venue, hotel, transport hub or shopping centre, transport hub or shopping centre, please do let the AccessAble team please do let the AccessAble team know via our website or social media know via our website or social media – it helps us to expand the number of – it helps us to expand the number of venues we cover. venues we cover. There are so many great places to There are so many great visit and amazing days out places to be to visit amazing daysaccess out to and be had. and Slowly but surely, had. Slowly but surely, access inclusion are improving to ensure and inclusion are improving to ensure that everyone can be a traveller for that everyone can be a traveller for a day, week, month or year, and that can savour the culture, athey day, week, month or year,colours, and that cuisine and createthe photographic they can savour culture, colours, memories to create their hearts desire. cuisine and photographic memories to their hearts desire.

D R M T R AV E L A N D L E I S U R E

EVERYBODY needs a break The people at Revitalise, a charity creating holidays for disabled people and carers, believe that the chance to get away from daily stresses and strains and enjoy a re-energising change of scenery is vital for everyone. They are determined to ensure that breaks are accessible to both carers and the people they care for...

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*Name has been changed to protect the privacy of the individual.

Fo r m o re i nfo r m a t i o n a bo u t Rev i ta l i s e, ca l l 0 3 0 3 3 0 3 014 5 o r v i s i t w w w.r evi ta l i s e.o r g .u k

“DOCTORS HAVE RECOMMENDED THAT JOANNA EXERCISES.”

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For Joanna*, finding somewhere to enjoy a break was like a breath of fresh air. When she was 27-years-old, Joanna noticed that she was beginning to lose sensation and movement in her body. Five years later, she was finally diagnosed with hemiplegic migraines. “When my illness got a lot worse, I was in and out of hospital a lot and couldn’t go on holiday. I’ve now been using a wheelchair for the last two years. I wish I knew about Revitalise sooner... At Revitalise I can go out and do things. I love going out on excursions and have even visited the Emmerdale studios while on holiday.” Doctors have recommended that Joanna exercises; and swimming really helps her muscles and arthritis. Revitalise Sandpipers has a hydrotherapy pool, so this gives Joanna the chance to enjoy swimming whilst on holiday. “The main thing that I come away with from my breaks at Revitalise is confidence. I don’t feel afraid or scared that I am disabled – instead I’m made to feel that I can achieve things. People accept me for who I am at Revitalise. It’s like one big family. I have made a few friends at Revitalise that I keep in touch with on a daily basis. I like it because I can open up about things and we share a lot in common.” Revitalise creates respite holidays, with the reassurance of 24-hour nurse-led care, as well as support from volunteers at three UK holiday centres in Chigwell, Southampton and Southport. Fully

accessible excursions, activities and entertainment are fundamental features of all Revitalise holidays. Carers are welcome to accompany those they care for to Revitalise and enjoy quality time with the one they love, or they can take their own break, secure in the knowledge that their loved one is happy and being well looked after. The Revitalise effect is the same either way – guests go home with new memories and stories to share, feeling refreshed and rejuvenated.

T R AV E L A N D L E I S U R E D R M

CONSIDER THIS! Husband and wife and business partners, Kelly and Hester Grainger share their stories of how Asperger’s has become a part of their family’s life.

This is the time to be a pushy parent. Both my son and daughter mask. Masking is often associated with girls, but boys can mask well too. So, don’t be put off if people tell you, they aren’t autistic because they cannot see any obvious traits. Talk to the school or go to the GP. My daughter wasn’t diagnosed the first time, as the report from the school said they didn’t think she was autistic. Her behaviour at school was very different to when she was at home. I spoke to the school and asked for a more experienced teacher to spend time with her. Thankfully they did and she

could instantly see through the masking. We were then able to get the official diagnosis. If I hadn’t pushed really hard, she would have slipped through the net.

Get reading There are so many amazing books out there and online resources. The more you read the more you learn.

Hester Grainger AS a mum to two children (aged 8 and 10) and a wife to a husband, I’ve learnt a lot in this past year – as they were all diagnosed with autism. It came as a shock when we received the official diagnosis. However, as soon as we got the reports, I started reading as much as I could about Asperger’s Syndrome. I believe knowledge is power. We realised very quickly, that in order to get any kind of support, we would have to really fight for it. What people don’t tell you, is once your child has been diagnosed and you get handed the report, you are simply sent on your way. There is no guidance on what to do next. There are no follow-up phone calls. No appointments to see how you are getting on. Nothing. If you aren’t prepared for that, it can be a real shock.

Pushy Parent

HESTER: “ONCE YOUR CHILD HAS BEEN DIAGNOSED AND YOU GET HANDED THE REPORT, YOU ARE SIMPLY SENT ON YOUR WAY.”

A lot of people have asked me, when was it I realised that my children were autistic. For me there was never a defining moment. Looking back now, I can see there were traits, but I just thought these were quirky and individual. If you suspect your child might be autistic, trust your instinct.

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D R M T R AV E L & L E I S U R E

Find your tribe When it comes to parenting autistic children, no-one else is going to understand you like a parent of an autistic child. Find your support group. Whether it’s online or in person. If you search you should be able to find groups in your area. They often accept parents whether or not the child has had an official diagnosis. Without support or someone to talk to, it is hard work and you can feel like you are on your own.

Keeping it in the family After our children were diagnosed and we started reading more about autism, my husband Kelly realised that he had similar traits. We had mentioned over the years about whether or not Kelly was autistic but never thought anymore of it. We talked about the merits of getting a diagnosis as an adult. After all he is forty-four, so what difference would it make now? Kelly decided that he wanted to find out officially. He was diagnosed in December with Asperger’s Syndrome, just like the children. It’s really helped them, knowing that their dad is autistic too and that he understands them. A lot of parents I speak to, do start to wonder if they have autism. Having read so much about it, they can often identify. But it’s whether or not you want to make it official. The benefit of getting an adult diagnosis for my husband, is that he finally realises ‘why’ he is the way he is. There is a reason for how he has felt all these years. For others, it may be about accessing additional services or getting some help in the workplace. Some adults just ‘identify’ as autistic, which can be enough for them. Whatever stage you are at, on the autism journey, remember that it’s up to you to fight for and support your children. The road can be long. In some areas, it can take up to two years to get diagnosed. You need to be your child’s biggest cheerleader. Most importantly, remember that you know your child best, irrelevant of what anybody else says.

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Kelly Grainger 2019 was a pivotal year for me and my family as a whole. Both of my children were diagnosed with Asperger’s, a form of autism. And during the diagnosis process, it became clear that I too shared many traits. We are all perfectionists; obsess over the tiny details; can be quite serious and definitely need our routines. Without this, we can all become anxious. So, after both my children were diagnosed, I decided that I should get assessed too.

You don’t look autistic! Then came the question of when should I tell others about my diagnosis, or if I even should. Having mental health issues in general amongst men, in my experience, is seen as a weakness. I was worried this was the same with autism. If it’s not physically visible, then it’s not taken seriously. I’ve had a mixed response when I’ve told people about my diagnosis. One guy, laughed “Really? You don’t look autistic!” How do I even answer that? That being said my diagnosis has been extremely positive. It has been incredibly reassuring for our children. To know that their daddy is also autistic, understands their world and what they are going through. We call ourselves the ‘A’ team. From a work perspective, there have also been big changes. After nearly twenty-three years working in the corporate world for some of the world’s biggest brands, I decided to say ‘goodbye’ to it all. I realise now I have been masking all these years and I just didn’t want to continue. So, I decided to start out on a new and incredibly exciting adventure. My wife and I have talked about setting up a business together for years. And with this newfound sense of purpose and understanding, it has given us the push we needed to just go for it. My amazing wife Hester and I have set-up Hudia (named after our children), a PR, social media and web design consultancy. In truth, I have never felt that I had a purpose (outside of my family), perhaps that’s an effect of my autism. Since the diagnosis, I feel I have now found that purpose. Sharing my story, driving awareness and supporting others through their diagnosis. Knowing now that I am autistic is hugely positive. I finally feel a sense of freedom. To be who I am, without

KELLY: “I HAVE ALWAYS FELT A BIT DIFFERENT.”

Different I have managed to be successful in life, including in my career, for forty-four years, so why now? In truth, I have always felt a bit different. The way I thought, the way I felt (or not). I had this constant nagging feeling that there was something more. More to me. More to life. So, with the knowledge that there was something that could make sense of all of this, I decided to get an official diagnosis. When I got the report, it came with two overriding feelings; relief and sadness. Relief that there was something that explained why I do, say and feel the things I do, say and feel. A newfound sense of understanding of myself; the ‘why?’ behind my likes and dislikes. Then, came the sadness, because I felt like I have had forty-four years of not really knowing who I am. Forty-four years of masking, mimicking others, trying to fit-in with the world and those around me. And I’ve been doing that my whole life without realising ‘why?’. If I had been diagnosed earlier, I would definitely have made different choices. Choices that would have benefitted me and would have worked to my real strengths and weaknesses. Some might say that is just hindsight and everyone feels that way. But it is much more than that. The biggest question I still have and that remains unanswered is – Who am I?

having to hide in plain sight.

www.hudia.co.uk

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Photographer: Berni Palumbo

I have found that the National Autistic Society is an extremely useful resource. Also contact your local council as they may run free courses. Look on Eventbrite too, using the search word ‘autism’ and you’ll find courses that may be relevant. The Curly Hair Project is great for girls with autism. Temple Grandin and Tony Attwood are also synonymous with autism, so worth a Google too.

2020 20 Travel Tips for the Vision Impaired Donâ&#x20AC;&#x2122;t let vision impairment stop you from experiencing the world, or even when travelling closer to home, here are some tips: TIP 1 For low vision, a magnifying glass can be helpful for reading small text on tickets. Make sure you carry one with you and pop it in a small bag to prevent it from getting scratched. TIP 2 Always ensure your caregiver or a close friend or family member has a copy of your itinerary and knows exactly where you are staying. TIP 3 Record the important details of your travel itinerary on your phone or device so you can play them back and listen to your flight number, or train time and so on. TIP 4 Use a cane as a signal to others

TIP 10 It is better to pay a little more for your accommodation if it is located centrally to the places you wish to visit. TIP 11 When booking visits to

attractions ensure you sign up for the guided tour, or the audio tape.

TIP 12 If people offer to help, confirm with them that you are on track. TIP 13 If people do not offer assistance, be brave and prepared to ask.

T R AV EL & L EI S U R E D R M

TIP 16 If travelling abroad exchange enough currency before you leave, maybe opt for a travel currency card over cash. TIP 17 If you speak Braille ask for any information from your travel provider well in advance of you travelling. TIP 18 Check beforehand if the places you wish to visit have a concessions rate. TIP 19 Keep your schedule flexible,

so plan some visits beforehand, but you may also wish to schedule some down time at your accommodation or allow for spontaneity when you get to your destination.

TIP 20 Most people take photos on holiday and you may wish to take a few so you can show friends and family, but you can also use an audio device to describe some of the experiences you have had.

TIP 14 Carry a fold-up rain coat that is lightweight. TIP 15 Carry water and a small

snack.

that you may need assistance and because there are often lots of steps.

TIP 5 Add an audible map application on your smartphone. TIP 6 If you have low vision add bright tape to your luggage, so you can easily identify it amongst other peopleâ&#x20AC;&#x2122;s luggage. TIP 7 You can buy and attach electronic devices to your luggage so it buzzes to alert you it is yours. TIP 8 Connect with a car or taxi company that can support you with travelling to key places. TIP 9 Ring ahead to your resort or hotel to check they have everything you require. w w w.seve ns tarme dia.co.uk

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D R M DISABILITY SPORT

All the right moves A street dance crew from a specialist college in Shropshire, stole the show at a dance competition in Wolverhampton, despite having only formed less than two months earlier. Derwen Dance Crew (DDC), made up of talented students from Derwen College, near Oswestry, entered Nexstar dance competition in Wolverhampton. The team performed as a group and with individual performances, receiving standing ovations from the audience and professional judges. The team of ten students with a range of special educational needs and disabilities (SEND) were thrilled to win first prize in the over 16s SEN Street Crew category. Students Ben Moore-Hill and BillieJo Bailey also wowed judges when competing against mainstream dance schools. Ben was awarded second place in the over-16s mainstream Street solo, and Billie-Jo achieved fifth place in the over-16s mainstream contemporary solo. The judges were impressed by the high standard of DDC, with two handing out the highest possible marks for the group’s performance. The achievement was made especially incredible as DDC was only launched in January, giving students just six weeks of rehearsal time to learn four group dances. Derwen College Sports and Activity Maker and dance instructor Opal Trevor, who assembled the group and supports them in rehearsals and performances, said she was incredibly proud of their achievements: “The crew have been attending weekly rehearsals and this weekend competed in their first ever mainstream street dance competition in Wolverhampton. They have worked so hard, turning up for rehearsals every week and practising between sessions. They were performing alongside groups and individuals who attend professional dance schools… The reaction from audience and judges was overwhelming. Everyone was blown away by what these students had achieved. We received standing

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ovations, there were even tears! Judges described the performance as beautiful, moving and a demonstration of the diversity of dance.” Student Ben Moore-Hill, from Sale, near Manchester, was delighted to receive a trophy for his performance in the mainstream street dance competition. The Performing Arts student, whose speciality is the ‘freeze frame’ move, said he was very happy with DDC’s success: “I was emotional and cried happy tears. I was very proud to dance in front of my parents and in memory of my grandma who recently passed away… It felt like I was a professional dancer. I have been dancing a long time and would like to do it as a career. Carrying on my Street Dancing at Derwen College has made me more confident.” Ben has been performing street dance since he was at school and said he was pleased to be able to share his skills with Derwen College students. Performing Arts student Giverney Blomeley said: “It’s really amazing. I was nervous on the

day, then so happy we won. I was crying happy tears too… We only started in January. It has been difficult to learn the routines but we’ve practised hard and worked well together as a group. To help me learn, I videoed routines on my phone so I could practise between rehearsals.”

“JUDGES DESCRIBED THE PERFORMANCE AS BEAUTIFUL, MOVING AND A DEMONSTRATION OF THE DIVERSITY OF DANCE.” O pa l Trevor Performing Arts student Giverney is now looking forward to dancing at College Prizegiving and has started rehearsals for the College’s big Summer Show. Competition raffle sponsor Steve Baxter from Sweet Memories in Wolverhampton, was so impressed with the Derwen College Crew that he donated the raffle money to DDC to help cover the costs of future competitions.

Der wen College, in Gobowen, Shrop shire, is a specialist college for young adults with special educational needs and disabilities (SEND). The college of fers students the oppor tunit y to learn new skills in real work environ ments and to learn life skills which will enable them to live as independently as possible. The college has received three consecutive ‘outstanding’ Ofsted gradings. For more information go to w w w.der wen.ac.uk.

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DISABILITY SPORT D R M

Sports co-ordinator Steve Evans praised everyone who took part and helped make the college’s first festival such a success.

Anyone for TENNIS? Students rally together at the college’s first tennis festival A smashing time was had by all when Shropshire’s Derwen College hosted its inaugural tennis festival. The specialist college for young adults with special educational needs and disabilities (SEND) welcomed more than twenty students from Severndale Specialist Academy in Shrewsbury and Coleg Cambria, in Wrexham to the Derwen College Disability Tennis Festival. The festival’s aim was to make tennis accessible to all, including tennis skills, fun games and challenges, engaging all students of all abilities. Tennis Shropshire representative and former chairman Bob Kerr attended, bringing along Tennis w w w.seve ns tarme dia.co.uk

“DERWEN COLLEGE IS ALL ABOUT INCLUSIVITY AND OUR SPORTS AND LEISURE ACTIVITIES ARE NO EXCEPTION.” Sports co-ordinator Steve Evans

Factory equipment – fun and colourful equipment to play tennis-themed games. LTA coach Thierry Piangnee, who runs weekly coaching sessions at Derwen College, also shared his skills and expertise with students.

He said: “We ran a range of tennisrelated activities, turning traditional tennis on its head to find ways to engage all the students. Everyone enjoyed taking part in activities and having a go, playing together supported by professional tennis coaches. It was lovely to see everyone of all abilities pick up a racket and play. We are proud to have organised such a fun event promoting fitness, social skills, self-confidence, team-building and fun through tennis.” This was the college’s first tennis festival and is part of Derwen’s commitment to tennis as part of the college’s packed sports and leisure programme. The college recently won Disability Programme of the Year at the 2019 County LTA Tennis Awards. The college for young adults with special educational needs and disabilities (SEND) now qualifies for the regional Lawn Tennis Association (LTA) awards which will be announced in March 2020. Derwen College Sport and Leisure Team have been working with Tennis Shropshire, with funding from British Tennis, to offer tennis sessions and competitions to all students. A Tennis Shropshire coach has provided weekly tennis sessions, and students have been inspired by attending the Davis Cup Competition and Wheelchair Masters competition.

www.derwencollege.ac.uk

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D R M DISABILITY SPORT

In the ring

Kate Farley is living proof that boxing can motivate and inspire absolutely anyone – no matter what their circumstances or background... The 29-year-old from Bournemouth has cerebral palsy that affects all four of her limbs and makes difficult a host of day-to-day tasks that other people take for granted. But once she enters the gym at Poole ABC, her determination and positive attitude, together with a warm welcome from coaches and staff, means there are no barriers to her enjoyment. After first stepping inside the ring last year, she now trains several times a week alongside her clubmates, boxing in a kneeling position.

Sparring on knees “I can’t express to you how much I’m loving it!” says Kate, “I’m really getting involved with the group, and included in all aspects of the training, even sparring on my knees. I really wanted to physically and mentally push myself and I saw boxing as a discipline that would accommodate my desire to challenge myself. I also wanted to be the fittest I could and I have always had a fighting spirit, so boxing was a natural choice for me. Being physically disabled, but so passionate about boxing; it’s the best feeling being able to train with such lovely, like-minded people who share the same interest and hugely challenge you in equal measure. When I’m boxing I forget that I’m disabled because I’m so focused on the task in hand. I could not ask for nicer coaches, they’ve really taken me on, made me feel completely comfortable and seem to be very supportive of what I’m doing. Although I’m the minority within the group, not only being the only disabled boxer but also, more often than not, the only girl, I’ve never felt more welcome and at home – especially when I’m in the ring!” Poole’s Head Coach, Neal Partridge has been thrilled with the progress Kate has

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made so far, particularly in such a short period of time. He hopes that other clubs will look to follow the South Coast club’s example and do more to make themselves accommodating to people with disabilities.

Opening up clubs to accommodate boxers with disabilities He said: “Kate has integrated far more fluently than any of us could have hoped for – she is training regularly and is really starting to socialise well with the other club members. It has been a real learning curve for everyone involved and just goes to show what is possible if we just try to be more open to people with disabilities, regardless if we think we already are.” Fellow coach Gilbert Ambrose has worked closely with Kate and said: “She’s now become more relaxed than when she first joined us, and we have started to see the real her, who likes a joke and is very funny. The other

boxers tell me it’s great to see someone not as able as others giving it a go. Hopefully it should inspire more people to try boxing, especially women, as she’s really one of the team now.” As for Kate herself, she is keen to see others with disabilities follow in her footsteps by using boxing as a workout. “I’m extremely keen to pioneer disabled boxing in any way I can and inspire others,” she said, “I love challenging people’s perceptions. Most people would never look at me and believe I box. But I’m strong, determined, motivated and passionate about the sport, so I think there’s no real reason why I shouldn’t.”

Inspiring others “Okay, I box a little differently – on my knees, but I still train to the same principles as a non-disabled boxer, to the best of my abilities. I receive messages daily from others with disabilities saying after watching my training videos they are now joining boxing clubs, which is the best feeling. Knowing that I’m encouraging disabled people to take up a discipline they initially assumed they would never be able to do is great. I want to continue to pioneer disabled boxing from now on. I’m currently investigating motivational speaking and travelling with the intention of illustrating how I box to others, so hopefully more people can do what I do.”

To fo l l ow Ka te’s t ra i n i n g u pd a te s a n d v i d e o s, v i s i t @ g i r l b oxe r_wi t h cp o n I n s ta g ra m. A r t i c l e w i t h t h a n ks : w w w.e n g l a n d b ox i n g .o r g

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H E A LT H Y E AT I N G D R M

Smashed Avo on Toast

This simple meal is perfect for a filling breakfast, a delicious lunch or even a light evening meal… it is packed full of nutrients and goodness, ideal to boost your immune system.

Fresh/frozen spinach or kale 1 large avocado 1 large organic free range egg 2 slices of wholegrain brown bread A pinch of cayenne pepper/chilli flakes ½ clove of garlic Pink Himalayan salt Coarse black pepper Cooking oil (vegetable, coconut or olive) Fresh cherry tomatoes (optional)

METHOD:

You can choose to fry, soft boil or poach your egg – the main thing is that the yolk is still runny, as it adds the flavour and texture to the meal.

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To soft boil: Add an egg in the shell to a pan of boiling water, time it for five minutes before carefully removing. Deshell when it has cooled. To fry: Heat a small amount of your choice of cooking oil in a non-stick pan and crack an egg onto the heated oil, allow it to cook for a couple of minutes and use a spatula to flip the egg over for another minute. Ensure the egg white is cooked before serving. To poach: (The easiest way to poach an egg is to use a poaching pan and follow the simple instructions.) Crack an egg into a bowl and prepare a pan of water for simmering – a drop of vinegar can help cook a good poached egg, but do not add salt to the water! Tip the egg into the pan so the white goes first, followed by the yolk. Cook for two minutes, and turn the heat off – the egg will continue to

cook for another eight minutes or so. Then remove with a slotted spoon and placing on kitchen paper to drain.

2. 3.

Pop two slices of bread under a pre-heated grill or in a toaster.

While your egg is cooling and the bread is toasting, carefully slice the avocado and mash it in a bowl with the half clove of garlic.

Photographer: Daria Shevtsova Pexels

INGREDIENTS:

Place the toast on a plate, spread the smashed avocado, add fresh or cooked spinach/kale, and top with your choice of egg. Season your meal to taste using a pinch of cayenne pepper/chilli flakes, a crack of pepper and salt and you can even add some fresh tomatoes.

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Could you be an adoptive family for this little boy?

Hi, I’m Kevin, I’m 6 years old

Things that make me happy. I love action songs such as Round and Round the Garden and Heads, Shoulders, Knees and Toes. Playing Boo! I will move my head to find you. Stories such as Dear Zoo, Dr Seuss or Bear Hunt. I can anticipate when something exciting is about to happen… Oh and the Hungry Caterpillar and the Gruffalo! Listening to music, especially Slovak Gypsy music. Watching films such as Moana, Mary Poppins, Coco, The Greatest Showman, especially the songs and the noisy bits! Water play, anything tactile, walks in my wheelchair, cinema, being silly, trampoline, horses.

What people like and admire about me. I have a wonderful sense of humour and laugh and smile when someone is funny or cheeky to me. They say my smile is contagious and must be my super power!! Even though I can’t talk, I can show my emotions and can tell you when I’m happy, sad, cross, playful. I join in with things and give things a go. That could be wheelchair football, messy play, splashing in water, theatre trips, shopping trips, baking cakes…

How I want to be supported: I need a family who can recognise that I have a lot to give and where I can be the centre of their world. I am strong and adaptable but need a family for good where I won’t have to keep moving. I will be supported to attend a local school and to be the very best I can be; my legs are getting stronger when I use my standing frame. I am also strong on the inside too and give my all to everything I do. There’s not much I don’t like except tidying my room! I will enrich your life; you will find yourself learning Slovak words, and you will help me to be super-proud of my Eastern European heritage. You will laugh at funny jokes with me. I’m learning how to communicate all the time and have little conversations with people who talk and play with me. You will be a good advocate and help me access new tools for learning. You will support me to make choices for myself and help me influence my surroundings, and to be empowered. I like it being noisy, busy, with lots of bustle. I love bright colours. You will be fun, kind, silly and sociable.

I’m beginning to make choices for myself and I’m good at trying new things. I was very brave when I moved from hospital to my current home. I make a big impression on all those who meet me. I’m a real hero. I won a Star Award for being brave, overcoming adversity and making people smile. I can build strong bonds and have my special, favourite people. I recognise voices very well.

For more information please contact: Contact: Lizzy Pannell, Family Finder/ Social Worker, Adoption Team, Sheffield City Council Tel: 0114 2053504 Email: lizzy.pannell@sheffield.gov.uk Address: Adoption Service, Sheffield City Council, Level 7, East Wing, Moorfoot, Young Street, Sheffield S1 4PL

ADOPTION & FOSTERING D R M

Supporting Mental Health for adopted children It is reported that adopted children are almost twice as likely to suffer with mood related mental health conditions such as anxiety, depression and behavioural problems. And for those children that feel uncertain about being adopted, or for the ones that reject the process – they can be impacted with mood disorders, grief and loss, post-traumatic stress disorder, identity and attachment disorders, and personality disorders…

child does not feel pressured in these situations.

The mind can be the enemy with some conditions, so encouraging activities that place a child with a mental condition back into the moment is a great strategy — activities such as indoor climbing, a martial art, mountain biking, swimming — When minds are busy focusing on the key

We live in a time when mental and emotional disorders are becoming more acknowledged for need of care and treatment. And these are best integrated at a young age.

So what can be done to assist your adopted or fostered child who is suffering with some of these conditions as a result of early-life adversity? Adoption and fostering is a huge part of the equation for many of these children who are placed into homes that are not the ones they were born into… they may feel unwanted, or confused, amongst other things. There are a number of therapies that can support your child depending on the severity of the condition or disorder. For example, talking therapies are effective for children who are social or at least feel comfortable enough in the presence of a therapist to share their experiences and to become aware of their behaviours. For children that are selective mutes this type of therapy can be a waste of time and money – and art therapy or something creative may be more appropriate. The main aim of any therapy for a child is for it to be effective yes, but a therapy needs to work for the specific character of the child as well as their condition, and above all the child must feel w w w.seve ns tarme dia.co.uk

safe enough that they are willing to embark on therapy in the first place, and not feel that it is just another thing they are being made to do. So do your research, and ask for help yourself – considering aspects such as the frequency of the therapy, the cost, what types of condition it supports and so on.

activity then there is a sense of feeling in control and safe because of the positive distraction.

Avoid too much screen time – research shows that this can create negative reward systems in the brain, and a child may learn to rely

How can you give your child this sense of safety and nurturing that they need outside of the therapy room?

on these virtual sensations to feel a

Simple things such as giving the child space to feel safe to move around or to curl up and be themselves. And giving the child the appropriate level of affection depending on their disorders – some children are threatened when they are touched and others require lots of hugs and reassurance – underneath it all – all children seek love and safety and warmth – so even by providing your child with these basic needs they will have a sense of feeling safe.

computer games such as the

If you are in the care of a child that is creative, then allow them to make their music, or to paint, or write, or knit.

Integrating children gradually socially

sense of ‘happiness’ or self-worth. Social media is best left out of the equation too – although this is tricky for the older children. Try interactive dancing ones.

Your child needs balance – and this comes with moderating ‘feel good’ lifestyle choices such as sugary or processed food.

Tapping into what your child really enjoys is the key to them feeling a sense of acceptance and comfort in new surroundings with an uncertain future – so get creative and give them the space they need to express who they really are – which is likely to take a while and require some patience. Remember to reach out for help from your support network and relevant professionals too.

is also very important but delicate – do so with care and ensure your

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D R M ADV ERTO R IAL

Planning for the future

If your loved one is disabled or vulnerable it can be challenging to plan for their financial security. Here are a couple of ideas that might help...

Section 89 Trust

A Section 89 Trust is a way of managing assets for a disabled person. It might not seem politically correct these days to use the term “disabled person” but that is the term that is used in the legislation itself. One of the key benefits of this type of trust is that it receives beneficial tax treatment for income tax, capital gains tax and inheritance tax. It can also mean the disabled person has the benefit of funds held in a trust, but is still able to access means tested benefits. The trust could be set up by the disabled person themself or perhaps another family member. People could make gifts into the trust during their lifetime or in their Will. The trust can provide a useful way of looking after funds for a disabled person. Perhaps a number of inheritances from family members could be gifted to the trust! This is a niche area of law and it is important to get it right at the outset. Wrigleys can do this.

Statutory Will

If someone lacks the capacity to sign their own Will then it is possible to apply to the Court of Protection for the authority to sign a Will on their behalf. This could be beneficial if a current Will is out of date and no longer reflects what you know your loved one would want. Or if there is no Will at all and those who will inherit under the rules of intestacy are not those who you think your loved one would want to benefit. It is the Court of Protection that approves Statutory Wills and they would need to be reassured that the proposed Will is in the incapable person’s best interests. That is not as straightforward as it sounds. This is another niche area of law where Wrigleys have a wealth of experience and expertise. We can guide you through the entire process from start to finish. Au t h o r : Ja n e N et t i n g, Pa r t n e r a n d H e a d of Co u r t of Prote ct i o n a n d Pr i va te Cl i e nt te a m s .

Wrigleys Solicitors can help you and your family plan for the future Wrigleys specialise in helping vulnerable and disabled people. We have a team of people who are dedicated to looking after the best interests of clients either via a trust or through the Court of Protection/Deputyship. Our article in this edition of the Disability Review Magazine covers two possible areas where we could help. For Section 89 Trusts contact Peter Clarkson t: 0114 267 5581 e: peter.clarkson@wrigleys.co.uk

For Statutory Wills contact Jane Netting t: 0114 267 5621 e: jane.netting@wrigleys.co.uk

Alternatively write to Wrigleys Solicitors LLP, Derwent House, 150 Arundel Gate, Sheffield S1 2FN tel: 0114 267 5588 • www.wrigleys.co.uk

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Revitalise Sandpipers Safe care and support during the crisis

We are a national charity that typically provides award-winning holidays and muchneeded breaks for disabled people. Due to recent events, we are transforming Revitalise Sandpipers and providing a safe haven for those struggling during this difficult period. We are now offering short or long stays with comprehensive care support at Revitalise Sandpipers in Southport. With fully-qualified care workers already on-site, specialist equipment and over five decades of care support behind us, we are extremely wellplaced to make the transformation.

We welcome anyone unable to get the care they need at home. We are also helping vulnerable people, for example, family carers who are finding things challenging. Sandpipers sits in a beautiful location in Southport, perched proudly on Marine Lake. It has excellent facilities, quality hospitality, full-board and 24-hour nurse-led care. Thatâ&#x20AC;&#x2122;s not to mention the sun terrace with balcony overlooking the Marine Lake and gardens.

Stay safe.

Quote DRM200 Call 0303 303 0145 Email bookings@revitalise.org.uk Visit revitalise.org.uk Registered charity number: 295072.

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We look forward to welcoming you when lockdown ends

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Make a difference at a local level Search for jobs with Southwark Council

Visit: www.jobsatsouthwark.co.uk

www.jobsatsouthwark.co.uk

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DRM To advertise, please call 01959 543 650

• A fantastic induction • The highest standard of training • Great supportive team • Competitive pay • Wellbeing and work/life balance • Long service and excellence awards • Pension and Life Assurance • Rising annual leave

careers.seeability.org Charity number 255913

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DM Orthotics have been supporting patients with a range of neurological conditions for over 15 years

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Our dynamic movement orthoses work using a combination of compression and strategically placed reinforcement panels. These factors influence sensory and proprioceptive feedback helping to guide the body into a better postural or functional position. Our products have been clinically proven to assist patients that suffer from the following conditions: • • • • • • •

Cerebral Palsy Multiple Sclerosis Stroke Traumatic or acquired brain injury Muscular Dystrophy Scoliosis – both neuromuscular & idiopathic Hypermobile conditions including Hypermobile Spectrum Disorder or Ehlers Danlos Syndromes

www.dmorthotics.com live your life.

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Nurturing Independence

The halow project supports young adults with a learning disability to live the life they choose as independently as possible. We believe that the young people we support have a right to the same life choices and chances as any other young person.

halow provides exceptional person-centred care which enables young people with a learning disability to take control of their own lives by providing opportunities and support to: •

make and meet friends through social activities

•

build confidence and life skills

•

access meaningful work and homes of their own

halow currently supports over 200 young people (aged 16+) throughout Surrey and the surrounding area.

Stephen “halow has changed my life.”

Edward

halow offers a range of activities including: • •

Buddy Service Supported Living

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@halowproject

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Social Activities

• •

Building Futures A Reason To Get Up

@Thehalowproject

Please Visit:

www.halowproject.org.uk

“I love halow because of the fun and interesting sessions and I get to see all my friends.”

Emma “I love being at the gym with halow and I like person centred planning sessions.”

for more information or call us on:

01483 447960 Reg. Charity No. 1116773

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Would you like to work for halow? – contact jobs@halowproject.org.uk to find out about our rewarding opportunities. OR Volunteer for halow -volunteering@halowproject.org.uk

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We’re recruiting “Specialists in vehicle adaptions for people with disabilities”

Join one of Hightown’s dedicated care and supported housing teams in Herts, Bucks or Berks. Visit hightownha.org.uk/

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Hand Controls Drive from the Wheelchair Auto Adapt Platinum Dealer On site service available FREE advice 3 Year warranty on PBC products 20 years experience Left foot accelerators Radio remote systems Annual service reminders

We have three demo vehicles Call for friendly service and free advice on: 01525 850588 • www.pbconversions.co.uk

PB Conversions, Unit 1&2 Clipstone Brook Ind Est, Cherrycourt Way, Leighton Buzzard, LU7 4GP t: 01525 850588 e: pbconversions@aol.com

Hill Lodge Dorset

• Wheelchair-accessible Holiday let • Secluded location just outside Poole

• Sleeps up to 6 people • Tetraplegic owner

Contact Becky Hill on: Tel: 01202 630075 Email: becky@endeavour-uk.co.uk Web: www.endeavour-uk.co.uk

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DRM To advertise, please call 01959 543 650

The Sheiling Ringwood School and College (6-25 years)

Set in a stunning, sustainable and eco-friendly 40-acre site close to the New Forest and Dorset coastline, the natural surroundings of our school and college provide a rich, enabling and therapeutic learning environment for students who have special educational needs.

We offer an individualised and flexible approach to placements. Day and residential. We also offer respite services for our students during the holidays.

Call 01425 477488 www.thesheilingringwood.co.uk

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Appreciating You And valuing everyone’s differences

Brunel University London is located on the western edge of the capital set within a modern campus environment. One of the University’s greatest strengths is the diversity of its culture, backgrounds, values and individual differences of people who live, work and study here. The staff workforce drives and supports the invaluable teaching, research and enterprise activities and also contributes to the University’s exciting diverse community. A wide range of employment opportunities are available at the University and we encourage you to visit our website to view our current vacancies. We positively encourage applications from all sections of the community.

www.brunel.ac.uk/about/jobs/home

Committed to equal opportunities and representing the diversity of the community we serve

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Exploring new horizons?

Find your job opportunity of a lifetime at

www.bas.ac.uk/jobs

At Royal Holloway, University of London, we are a close-knit community and proud of the egalitarian spirit of our founders, which we continue to foster today. We value diversity and promote equality of opportunity for students and colleagues, whether they work in academia or professional services. We welcome applicants from all backgrounds, particularly people with disabilities, both students and staff. https://www.royalholloway.ac.uk

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THIS IS TALKING NEWSPAPERS A new free mobile application for all with sight loss

Imperial College London recognises the value of a diverse workforce and encourages people of all abilities and backgrounds to apply to join our high achieving community.

Our disabled staff are core to our organisation, and we make every effort to ensure that they are supported within their working environment for their duration at Imperial. We have a flagship leadership programme called Calibre for disabled staff to help them realise their potential and support their professional and personal development.

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working together listening together stronger together

We are a Disability Confident Leader and welcome applicants with disabilities, health conditions, injuries or other differences for jobs at all levels at Imperial: www.imperial.ac.uk/ employment

Tralee Bay Chalet

Enjoy a break near Oban at any time of the year Our Chalet Tralee Bay Holiday Park, near Oban on Scotlandâ&#x20AC;&#x2122;s pictureesque west coast g Sleeps up to seven g Easy wheelchair access g Special equipment available and adaptations for people with limited movement

Call 0141 332 3903 for more details or visit our website at www.mndscotland.org.uk/ how-we-can-help/accessible-holidayfacilities/chalet-at-tralee-bay/ to book online

Clayton Lodge

Treloar School and College provides education, care, therapy, medical support and independence training to young people with physical disabilities to prepare them for adult life. For further details, visit our website www.treloar.org.uk.

Have a holiday in St Andrews Clayton Lodge Clayton Caravan Park on Scotlandâ&#x20AC;&#x2122;s picturesque east coast

Charity Number 1092857

g Sleeps up to seven g Easy wheelchair access g Special equipment available and adaptations for people with limited movement

Call 0141 332 3903 for more details or visit our website at www.mndscotland.org.uk/ how-we-can-help/accessible-holidayfacilities/clayton-lodge/ to book online

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D R M BEST WISHES

Best

WISHES The following people, businesses and companies would like to extend their very best wishes to all those affected by disability

Aldersons Ingredients Anglia Handling Services Ltd

BLUELIMIT Surveys Ltd Brian Scholar & Co

Cambrai Covers Charles Bates Kent Ltd Clarke & Simpson Creative Interior Design Ltd

Howard Construction (Anglia) Ltd

Keith Goodwin Associates

North Lincs Engineering Ltd

R Burton Plumbing & Heating

Dingbro International Ltd

Snappy Snaps Supacleen Ltd

Fielding Engineering (UK) Ltd

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0333 444 3002 sales@catalyst.homes | www.catalyst.homes

® Reg. Trademark of Société des Produits Nestlé S.A. Shredded Wheat is low in saturated fat. Reducing intakes of saturated fat helps maintain normal blood cholesterol levels. Enjoy as part of a healthy diet and lifestyle. Shreddies is high in fibre and provides a source of iron which contributes to normal energy-yielding metabolism, as part of a varied diet and healthy lifestyle. Multigrain Cheerios is a source of calcium which is needed for maintaining normal bones. It’s important to have a varied, balanced diet and healthy lifestyle.