4 minute read
MEET THE VESCELUS fAMILY
Matthias’s journey with bilateral retinoblastoma, diagnosed at just three months old, profoundly shaped his family’s life. The diagnosis, resulting from testing after his pediatrician observed an unusual white glow in his eye, led to extensive treatments and the eventual removal of both his eyes before his first birthday. This life-altering event meant Matthias would grow up as a totally blind individual.
Navigating the challenges of blindness has been a journey of resilience and advocacy for Matthias and his family, who live in Noblesville, Indiana. Initially, explaining his condition to others was straightforward—he cannot see— but conveying his independence and capabilities posed a greater challenge.
Despite his visual impairment, Matthias thrives academically in honors classes at Noblesville High School, where he’s been mainstreamed throughout his educational career. His schooling is supported by assistive services from both the district and the Hamilton/ Boone/Madison Special Education Cooperative, primarily utilizing technology to integrate fully into the classroom environment.
Matthias’s pursuits extend far beyond academics. A dedicated athlete, he excels as a goalie with the Indiana Blind Hockey Team, demonstrating skill and determination that have earned him an invitation to train with the US Blind Hockey team. Beyond sports, he is known for his intelligence, humor, persistence, and kindness—qualities that define him beyond his blindness.
His parents, Katie and Craig, along with Matthias’s older brother Magnus, have been steadfast in supporting his journey. They’ve faced challenges common to families with visually impaired members, particularly the persistence of misconceptions about blindness. Overcoming these hurdles has required patience and education, emphasizing Matthias’s capabilities rather than focusing on limitations.
Reflecting on their experiences, the family cherishes numerous milestones and achievements that once seemed improbable. From attending regular kindergarten to excelling in high school academics and music—Matthias was first chair in his orchestra—each accomplishment reinforces their belief in his limitless potential. His advocacy efforts have also been notable; With St. Baldrick’s Foundation, Matthias has raised thousands of dollars for cancer research and actively engaged with legislators on pediatric cancer legislation, using his voice to make a difference. He and Magnus have also served as speakers for the Joseph Maley Foundation, a disability awareness organization in central Indiana. Magnus and Matthias traveled to schools across the greater Indianapolis area to teach children about living with blindness.
Outside academics and sports, Matthias enjoys diverse activities like jiu jitsu and weather reporting, showcasing his multifaceted interests. As a family, the Vesceluses prioritize balance in their activities, ensuring Matthias experiences a variety of interests while respecting his preferences and capabilities.
like INSource and the Lions Club, which have aided them in navigating the challenges of raising a visually impaired child. Additionally, summer camps such as Opportunities Unlimited for the Blind have fostered Matthias’s independence and personal growth.
For newcomers to Noblesville, the family highlights the community’s support for children with visual impairments through its excellent school system. Their experiences underscore the importance of education, advocacy, and community support in enabling individuals like Matthias to thrive despite significant challenges.
Matthias’s story is a testament to the power of resilience, advocacy, and familial support in overcoming adversity and achieving remarkable milestones. His journey continues to inspire and educate, challenging misconceptions about blindness and demonstrating the boundless potential within every individual.
