MS Walk 2017

Page 1

KAPAA, HAWAII- The annual Walk MS: Sunset is set April 15 at MS: KaKAPAA, Stroll HAWAIIThefor annual Walk pa’a Beach walk Sunset StrollPark. is setThe for1.5Aprilmile 15 at Ka-follows multi-use path in Kapa’a. More pa’a the Beach Park. The 1.5mile walk folthan 250multi-use people from Kauai comlows the paththe in Kapa’a. More munity willpeople join nearly others in than 250 from1,000 the Kauai comWalk MS events throughout munity will join nearly 1,000Hawaii. others in Walk MS: Sunsetthroughout Stroll brings together MS events Hawaii. the and determination of anyWalkpassion MS: Sunset Stroll brings together one who wants raise funds forofthe the passion andtodetermination anymore thanwants 2.3 million one who to raisepeople funds living for thewith MS worldwide. Last year, Kauai raised more than 2.3 million people living with more than $60,000 during Walkraised MS, MS worldwide. Last year, Kauai the largest amount induring the state. more than $60,000 Walk MS, the largest amount in the state. For Kauai residents living with MS like Mary Kay Hertog, theliving walkwith is a MS moment For Kauai residents like of both inspiration andwalk hope. Mary Kay Hertog, the is a moment of both inspiration and hope. “My greatest hope is that the money raised by the hope thousands “My greatest is thatand thethousands money of walkers andthousands donors willand result in a raised by the thousands breakthrough procedure of walkers andmedication donors willor result in a that will not just stop the symptoms, but breakthrough medication or procedure actually damage done to our that will repair not justthe stop the symptoms, but central system,” Hertog actuallynervous repair the damage done said. to our“I fundraise and come out toHertog the walk ev-“I central nervous system,” said. ery year inand the come hopesout of raising money fundraise to the walk evto research a cure in my eryfund yearthe in the hopesto offind raising money lifetime.” to fund the research to find a cure in my lifetime.”

Multiple sclerosis, an unpredictable, often disabling disease the central nerMultiple sclerosis, an of unpredictable, ofvous system, disease interrupts of nerten disabling ofthe theflow central information the brain, andofbevous system,within interrupts the flow tween the brain and body. Symptoms information within the brain, and berange numbness andSymptoms tingling to tween from the brain and body. blindness paralysis. range fromand numbness and tingling to blindness and paralysis. Each year, nearly 333,000 people walk and around the country Eachfundraise year, nearly 333,000 people to walk drive breakthroughs and fundraise aroundthat theimprove country everyto day For those living MS, it’s bedrivelife. breakthroughs thatwith improve everying to button theit’s bedayable life. For those their livingshirt with in MS, morning. getting back upinonthe that ing able toIt’s button their shirt bike. It’s having the first their morning. It’s getting backdance up onatthat daughter’s wedding. Feeling strong bike. It’s having the first dance at their enough to fall in love.Feeling Continuing the job daughter’s wedding. strong they were enough tomade fall in for. love. Continuing the job they were made for. The progress, severity and specific symptoms of MS in anyand onespecific person canThe progress, severity not yet be predicted, butone advances resymptoms of MS in any personin cansearch treatmentbut areadvances moving usin renot yet and be predicted, closer a world free ofare MS. Most us peosearchtoand treatment moving ple withtoMS are diagnosed the closer a world free of MS.between Most peoages of 20 with at least two the to ple with MSand are50, diagnosed between three times more women ages of 20 and 50, with atthan leastmen twobeto ing diagnosed withwomen the disease. three times more than men being diagnosed with the disease. Call 855-372-1331 to register or visit walkMS.org to learnto more. Call 855-372-1331 register or visit walkMS.org to learn more.

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Seeing Seeing the the world world in in gray gray Dennis Fujimoto Dennis THE GARDENFujimoto ISLAND THE GARDEN ISLAND LIHUE — When Angie Soto woke up one LIHUE — and When Angie Sotoshe woke upwas one morning half of what saw morning and half of what she sawwas was grayed out, she knew something grayed out, she knew something was wrong. wrong. “I started to lose sight in my right eye,� Soto “I started to lose sight it inwas my right eye,� Soto said. “At first I thought an eyelash, or said. “At first I thought it was an something because it looked likeeyelash, how or something looked how of things look because like whenithair fallslike in front things lookWhen like when hair front your eyes. I woke upfalls andin half wasof your eyes. When I woke up and half grayed out, I said, ‘Whoa! Somethingwas is grayed out, ‘Whoa! Something is definitely notI said, right.’� definitely not right.’� At 27-years-old, Soto was diagnosed with At 27-years-old, was diagnosed with optic neuritis, orSoto an inflamed optic nerve. optic neuritis, or an inflamed optic nerve. “I was sent to a neurologist who admitted “I was to a neurologist me for sent treatment,� Soto said.who “Onadmitted a subseme forvisit treatment,� said.asked “On ame subsequent to followSoto up, they if quent visit to follow up, they asked me there were any other symptoms. Duringifthe there were Iany other symptoms. treatment, didn’t think much of During it, but I the treatment, I didn’t think much of started to get a tingling feeling in it, mybut fin-I started get aIttingling feeling in my That fingers andtotoes. was a weird feeling. gers and toes. It was a weird feeling. was a symptom of multiple sclerosis.�That was a symptom of multiple sclerosis.�

The discussion led to Soto getting an MRI The spinal discussion led to doctors Soto getting MRI and tap where foundanlesions andher spinal tap where doctors found lesions on brain. on her brain. “This is crazy,� Soto said. “What kind of “This is crazy,� kindup, of sickness is thisSoto that said. when“What you wake sickness is this is that when you wake up, half your vision gone?� half your vision is gone?� Cynthia Edralin, a person living with MS, Cynthia personpeople living with MS,difsaid the Edralin, diseaseaaffects in many said the disease affects people in many different ways. ferent ways. “In Angie’s case, it affected her vision,� “In Angie’s affected vision,� Edralin said.case, “But,itshe’s stillher such a sweet Edralin said. “But, she’s still suchyear a sweet person. She walks with us every at the person. with us walk, every too.� year at the MS Walk.She Andwalks her parents MS Walk. And her parents walk, too.� The treatment for Soto’s disease involved The treatment Soto’s disease involved injecting herselfforevery other day. This was injecting herself every other day. This probably the hardest thing she had to was cope probably the hardest thing she had to cope with. with. “It was painful,� Soto said. “Injecting every “It wasday painful,� Soto said.atrophy, “Injecting every other resulted in skin or more other day resulted in skin atrophy, or simply, running out of places to inject.more It simply, running of places inject. was painful, andout it was one oftothe hardItrewas painful, it was one the hard reminders thatand something wasofgoing on with minders going me. Therethat aresomething some dayswas when youon feelwith me. There are some days when you feel

perfectly fine, but there was someperfectly fine, there was something going on,but inside.� thing going on, inside.� At the time she was diagnosed, Soto At the time sheAunty was diagnosed, Sotoin worked at the Lilikoi’s facility worked at the Aunty Lilikoi’s facility in Waimea. Waimea. “There were some days I felt really “Thereshe were some days I felt really tired,� said. “Despite getting a tired,� she “Despite getting good’s nightsaid. sleep, I was tired anda good’s tired andMy felt like night I was sleep, hit by aI was Mack truck. felt likenever I wasreally hit bycame a Mack truck. My vision back. It was visionif never really came on back. It was okay I looked at things a monitor okay if I MS looked at things on a monitor screen. affected my depth perscreen. and MS affected my six depth perception for the first months, ception forI the first six months, or even aand year, wouldn’t drive at or even a year, wouldn’tand drivecan at night. Now, I’ve Iadjusted night. Now, I’ve adjusted and can drive with no problem.� drive with no problem.� The hardest thing about being diagThe hardest thing abouttobeing nosed with MS is trying keepdiagbusy, nosed with MS is trying to keep busy, she said after living with MS for the past six she said after living with MS for the past six years. years. “MS spurred me on to change my career,� “MSsaid. spurred me onme to go change career,� she “It made back my to school she said. “It made me go back to school and earn my Master’s degree in Informaand Technology, earn my Master’s degree Information and this job atinKukui IT. I tion Technology, and this job at Kukui IT. I

CONNECT WITH OTHERS CONNECT WITH OTHERS The National MS Society’s self-help, otherwise known

The National Society’s otherwise known as Talk Story MS Meetings, areself-help, groups for individuals with as Story Meetings, are and groups forcare individuals with MS,Talk their families, friends, other partners. MS, their families, friends, for andthe other care partners. Members gather regularly purpose of sharing Members gather regularly the purpose of sharing common experiences and for concerns, providing and recommon experiences and concerns, providing and receiving emotional support, and obtaining information. ceiving emotional support, and obtaining information.

haven’t had any relapses, and the main haven’t hadme any and the amain thing is for torelapses, stay active — live thing is life for me to stay liveto.� a healthy for as long active as I’m —able healthy life for as long as I’m able to.� Edralin said Soto will be walking at the MS Edralin Stroll said Soto walking start at theatMS Sunset whenwill thebeactivities Sunset Stroll when the activities start 4:00 p.m. at the Kapaa Beach Park onatApril 4:00 p.m. at the Kapaa Beach Park on April 15. 15.

Kauai Talk Story Group Kauai Talk Story 1st Wednesdays of Group each month, 5:30pm-7:00 pm. 1st month, 5:30 ThisWednesdays group travelsoftoeach different parts of p.m-7:00 the island.p.m. Mary This group travels to different parts of the island. Kay Hertog and Laurie Nakama, Co-Facilitators . Mary Kay Hertog and Laurie Nakama, Co-Facilitators.

Team leaders for the Walk MS-Sunset Stroll show off Team leadersproclamation for the Walkand MS-Sunset off the mayoral council Stroll certiďŹ show cate of the mayoral proclamation and council certiďŹ cate of support for the fundraising event scheduled for April support the fundraising event scheduled for April 15 at thefor Kapaa Beach Park. Shown are Mayor Ber15 atCarvalho, the Kapaa Shown are Mayor Bernard Jr.,Beach LauriePark. Nakama, Cynthia Edralin, nard Carvalho, Laurie Nakama, Cynthia Gen. (ret) MaryJr., Kay Hertog and Angie Soto.Edralin, Gen. (ret) Mary Kay Hertog and Angie Soto.

Kauai Caregivers Talk Story Group Kauai Caregivers Talkon Story Group availability and This group meets based participant This group meets based on participant availability and communicates regularly via email thread . For more communicates regularly via email thread . For more info about this group, please callB00-344-4867. info about this group, please call 800-344-4867.

We Proudly Support the Walk

to End Multiple Sclerosis

GARY’S SERVICE, INC.

are pleased to announce  � �  �

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Located at The Harry & Jeanette Weinberg Center for Compassion 4457 Pahe‘e Street Lihu‘e, HI

To learn more or to schedule an appointment Call 245-7277 or 645-0015 8 a.m. to 4 p.m.

A program of Kaua‘i Hospice, Inc. 22 00 1177 W WA A LL K K M MS S

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Wednesday, March 29, 2017 • 3


Seeing Seeing the the world world in in gray gray Dennis Fujimoto Dennis THE GARDENFujimoto ISLAND THE GARDEN ISLAND LIHUE — When Angie Soto woke up one LIHUE — and When Angie Sotoshe woke upwas one morning half of what saw morning and half of what she sawwas was grayed out, she knew something grayed out, she knew something was wrong. wrong. “I started to lose sight in my right eye,� Soto “I started to lose sight it inwas my right eye,� Soto said. “At first I thought an eyelash, or said. “At first I thought it was an something because it looked likeeyelash, how or something looked how of things look because like whenithair fallslike in front things lookWhen like when hair front your eyes. I woke upfalls andin half wasof your eyes. When I woke up and half grayed out, I said, ‘Whoa! Somethingwas is grayed out, ‘Whoa! Something is definitely notI said, right.’� definitely not right.’� At 27-years-old, Soto was diagnosed with At 27-years-old, was diagnosed with optic neuritis, orSoto an inflamed optic nerve. optic neuritis, or an inflamed optic nerve. “I was sent to a neurologist who admitted “I was to a neurologist me for sent treatment,� Soto said.who “Onadmitted a subseme forvisit treatment,� said.asked “On ame subsequent to followSoto up, they if quent visit to follow up, they asked me there were any other symptoms. Duringifthe there were Iany other symptoms. treatment, didn’t think much of During it, but I the treatment, I didn’t think much of started to get a tingling feeling in it, mybut fin-I started get aIttingling feeling in my That fingers andtotoes. was a weird feeling. gers and toes. It was a weird feeling. was a symptom of multiple sclerosis.�That was a symptom of multiple sclerosis.�

The discussion led to Soto getting an MRI The spinal discussion led to doctors Soto getting MRI and tap where foundanlesions andher spinal tap where doctors found lesions on brain. on her brain. “This is crazy,� Soto said. “What kind of “This is crazy,� kindup, of sickness is thisSoto that said. when“What you wake sickness is this is that when you wake up, half your vision gone?� half your vision is gone?� Cynthia Edralin, a person living with MS, Cynthia personpeople living with MS,difsaid the Edralin, diseaseaaffects in many said the disease affects people in many different ways. ferent ways. “In Angie’s case, it affected her vision,� “In Angie’s affected vision,� Edralin said.case, “But,itshe’s stillher such a sweet Edralin said. “But, she’s still suchyear a sweet person. She walks with us every at the person. with us walk, every too.� year at the MS Walk.She Andwalks her parents MS Walk. And her parents walk, too.� The treatment for Soto’s disease involved The treatment Soto’s disease involved injecting herselfforevery other day. This was injecting herself every other day. This probably the hardest thing she had to was cope probably the hardest thing she had to cope with. with. “It was painful,� Soto said. “Injecting every “It wasday painful,� Soto said.atrophy, “Injecting every other resulted in skin or more other day resulted in skin atrophy, or simply, running out of places to inject.more It simply, running of places inject. was painful, andout it was one oftothe hardItrewas painful, it was one the hard reminders thatand something wasofgoing on with minders going me. Therethat aresomething some dayswas when youon feelwith me. There are some days when you feel

perfectly fine, but there was someperfectly fine, there was something going on,but inside.� thing going on, inside.� At the time she was diagnosed, Soto At the time sheAunty was diagnosed, Sotoin worked at the Lilikoi’s facility worked at the Aunty Lilikoi’s facility in Waimea. Waimea. “There were some days I felt really “Thereshe were some days I felt really tired,� said. “Despite getting a tired,� she “Despite getting good’s nightsaid. sleep, I was tired anda good’s tired andMy felt like night I was sleep, hit by aI was Mack truck. felt likenever I wasreally hit bycame a Mack truck. My vision back. It was visionif never really came on back. It was okay I looked at things a monitor okay if I MS looked at things on a monitor screen. affected my depth perscreen. and MS affected my six depth perception for the first months, ception forI the first six months, or even aand year, wouldn’t drive at or even a year, wouldn’tand drivecan at night. Now, I’ve Iadjusted night. Now, I’ve adjusted and can drive with no problem.� drive with no problem.� The hardest thing about being diagThe hardest thing abouttobeing nosed with MS is trying keepdiagbusy, nosed with MS is trying to keep busy, she said after living with MS for the past six she said after living with MS for the past six years. years. “MS spurred me on to change my career,� “MSsaid. spurred me onme to go change career,� she “It made back my to school she said. “It made me go back to school and earn my Master’s degree in Informaand Technology, earn my Master’s degree Information and this job atinKukui IT. I tion Technology, and this job at Kukui IT. I

CONNECT WITH OTHERS CONNECT WITH OTHERS The National MS Society’s self-help, otherwise known

The National Society’s otherwise known as Talk Story MS Meetings, areself-help, groups for individuals with as Story Meetings, are and groups forcare individuals with MS,Talk their families, friends, other partners. MS, their families, friends, for andthe other care partners. Members gather regularly purpose of sharing Members gather regularly the purpose of sharing common experiences and for concerns, providing and recommon experiences and concerns, providing and receiving emotional support, and obtaining information. ceiving emotional support, and obtaining information.

haven’t had any relapses, and the main haven’t hadme any and the amain thing is for torelapses, stay active — live thing is life for me to stay liveto.� a healthy for as long active as I’m —able healthy life for as long as I’m able to.� Edralin said Soto will be walking at the MS Edralin Stroll said Soto walking start at theatMS Sunset whenwill thebeactivities Sunset Stroll when the activities start 4:00 p.m. at the Kapaa Beach Park onatApril 4:00 p.m. at the Kapaa Beach Park on April 15. 15.

Kauai Talk Story Group Kauai Talk Story 1st Wednesdays of Group each month, 5:30pm-7:00 pm. 1st month, 5:30 ThisWednesdays group travelsoftoeach different parts of p.m-7:00 the island.p.m. Mary This group travels to different parts of the island. Kay Hertog and Laurie Nakama, Co-Facilitators . Mary Kay Hertog and Laurie Nakama, Co-Facilitators.

Team leaders for the Walk MS-Sunset Stroll show off Team leadersproclamation for the Walkand MS-Sunset off the mayoral council Stroll certiďŹ show cate of the mayoral proclamation and council certiďŹ cate of support for the fundraising event scheduled for April support the fundraising event scheduled for April 15 at thefor Kapaa Beach Park. Shown are Mayor Ber15 atCarvalho, the Kapaa Shown are Mayor Bernard Jr.,Beach LauriePark. Nakama, Cynthia Edralin, nard Carvalho, Laurie Nakama, Cynthia Gen. (ret) MaryJr., Kay Hertog and Angie Soto.Edralin, Gen. (ret) Mary Kay Hertog and Angie Soto.

Kauai Caregivers Talk Story Group Kauai Caregivers Talkon Story Group availability and This group meets based participant This group meets based on participant availability and communicates regularly via email thread . For more communicates regularly via email thread . For more info about this group, please callB00-344-4867. info about this group, please call 800-344-4867.

We Proudly Support the Walk

to End Multiple Sclerosis

GARY’S SERVICE, INC.

are pleased to announce  � �  �

Â?   Â

Bring in this coupon to save $150 on your next  Â? Â? Â? Â? Husqvarna Tractor or  ­ € Â€ Zero-Turn Purchase! ‚

CONSULTATIONS IN PALLIATIVE MEDICINE AND ADVANCE CARE PLANNING Robert S. Weiner MD

Certified, Hospice and Palliative Medicine Certified, Surgery Certified Advance Care Planning

Located at The Harry & Jeanette Weinberg Center for Compassion 4457 Pahe‘e Street Lihu‘e, HI

To learn more or to schedule an appointment Call 245-7277 or 645-0015 8 a.m. to 4 p.m.

A program of Kaua‘i Hospice, Inc. 22 00 1177 W WA A LL K K M MS S

nationalmssociety.org nationalmssociety.org

nationalmssociety.org

inspection • free battery test • alternator test • starter test

with oil & filter Change! exp: 4/30/17

Michael H. Plumer MD, M.B.A.

� ƒ „ … † Coupon Expires: April 30, 2017

22 •• Wednesday, Wednesday, March March 29, 29, 2017 2017

electrical system

4469 Kolopa St., Lihue (behind Home Depot)

Ph: 245-2221 • Fax: 246-9182 www.garysserviceinc.com License No. RD1908

2 0 17 WA L K M S

Wednesday, March 29, 2017 • 3


KAPAA, HAWAII- The annual Walk MS: Sunset is set April 15 at MS: KaKAPAA, Stroll HAWAIIThefor annual Walk pa’a Beach walk Sunset StrollPark. is setThe for1.5Aprilmile 15 at Ka-follows multi-use path in Kapa’a. More pa’a the Beach Park. The 1.5mile walk folthan 250multi-use people from Kauai comlows the paththe in Kapa’a. More munity willpeople join nearly others in than 250 from1,000 the Kauai comWalk MS events throughout munity will join nearly 1,000Hawaii. others in Walk MS: Sunsetthroughout Stroll brings together MS events Hawaii. the and determination of anyWalkpassion MS: Sunset Stroll brings together one who wants raise funds forofthe the passion andtodetermination anymore thanwants 2.3 million one who to raisepeople funds living for thewith MS worldwide. Last year, Kauai raised more than 2.3 million people living with more than $60,000 during Walkraised MS, MS worldwide. Last year, Kauai the largest amount induring the state. more than $60,000 Walk MS, the largest amount in the state. For Kauai residents living with MS like Mary Kay Hertog, theliving walkwith is a MS moment For Kauai residents like of both inspiration andwalk hope. Mary Kay Hertog, the is a moment of both inspiration and hope. “My greatest hope is that the money raised by the hope thousands “My greatest is thatand thethousands money of walkers andthousands donors willand result in a raised by the thousands breakthrough procedure of walkers andmedication donors willor result in a that will not just stop the symptoms, but breakthrough medication or procedure actually damage done to our that will repair not justthe stop the symptoms, but central system,” Hertog actuallynervous repair the damage done said. to our“I fundraise and come out toHertog the walk ev-“I central nervous system,” said. ery year inand the come hopesout of raising money fundraise to the walk evto research a cure in my eryfund yearthe in the hopesto offind raising money lifetime.” to fund the research to find a cure in my lifetime.”

Multiple sclerosis, an unpredictable, often disabling disease the central nerMultiple sclerosis, an of unpredictable, ofvous system, disease interrupts of nerten disabling ofthe theflow central information the brain, andofbevous system,within interrupts the flow tween the brain and body. Symptoms information within the brain, and berange numbness andSymptoms tingling to tween from the brain and body. blindness paralysis. range fromand numbness and tingling to blindness and paralysis. Each year, nearly 333,000 people walk and around the country Eachfundraise year, nearly 333,000 people to walk drive breakthroughs and fundraise aroundthat theimprove country everyto day For those living MS, it’s bedrivelife. breakthroughs thatwith improve everying to button theit’s bedayable life. For those their livingshirt with in MS, morning. getting back upinonthe that ing able toIt’s button their shirt bike. It’s having the first their morning. It’s getting backdance up onatthat daughter’s wedding. Feeling strong bike. It’s having the first dance at their enough to fall in love.Feeling Continuing the job daughter’s wedding. strong they were enough tomade fall in for. love. Continuing the job they were made for. The progress, severity and specific symptoms of MS in anyand onespecific person canThe progress, severity not yet be predicted, butone advances resymptoms of MS in any personin cansearch treatmentbut areadvances moving usin renot yet and be predicted, closer a world free ofare MS. Most us peosearchtoand treatment moving ple withtoMS are diagnosed the closer a world free of MS.between Most peoages of 20 with at least two the to ple with MSand are50, diagnosed between three times more women ages of 20 and 50, with atthan leastmen twobeto ing diagnosed withwomen the disease. three times more than men being diagnosed with the disease. Call 855-372-1331 to register or visit walkMS.org to learnto more. Call 855-372-1331 register or visit walkMS.org to learn more.

TIRE WAREHOUSE KAUAI Passenger • Commercial • Off-Road Tires • Rims • Retreads

Complimentary boat tour for Kauai Residents with ID in 2017 Good

throug

Proudly Support the fight to cure Multiple Sclerosis!

h 12/3

1/16

Serving Kauai 42 Years THE TIRE DISCOUNT CENTER

for info, call or visit

4 • Wednesday, March 29, 2017

2 0 17 WA L K M S

nationalmssociety.org

Mon, Tues, Thurs, Fri 8am-5pm Wed & Sat 8am-1pm 3028 Aukele St, Lihue (Industrial Park II) www.tirewarehousekauai.com nationalmssociety.org

ISLAND WIDE ROAD SERVICE

245-6754

2 0 17 WA L K M S

• SHOCK ABSORBERS • BRAKES • FRONT END PARTS • WHEEL ALIGNMENT • MUFFLERS • SPLIT RIM • SAFETY CHECKS

Wednesday, March 29, 2017 • 1


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