P: 1800 651 422 or E: subscriptions@intermedia.com.au www.linkonline.com.au
Link is published six times a year by Interpoint Events Pty Ltd.
ABN: 9810 451 2469
A: 41 Bridge Road, Glebe NSW 2037
P: +61 2 9660 2113
F: +61 2 9660 4419
Reprints from Link are permitted only with the permission of the publisher. In all cases, reprints must be acknowledged as follows: ‘Reprinted with permission from Link Magazine’, and must include the author’s byline.
The opinions expressed in this publication are those of the authors and do not necessarily represent those of the publisher.
The Intermedia Group takes its Corporate and Social Responsibilities seriously and is committed to reducing its impact on the environment. We continuously strive to improve our environmental performance and to initiate additional CSR based projects and activities.
As part of our company policy we ensure that the products and services used in the manufacture of this magazine are sourced from environmentally responsible suppliers. This magazine has been printed on paper produced from sustainably sourced wood and pulp fibre and is accredited under PEFC chain of custody.
PEFC certified wood and paper products come from environmentally appropriate, socially beneficial and economically viable management of forests.
TFrom the Editor
here are some incredible shining lights in the industry and this issue captures quite few of them.
For our cover story Link caught up with former Paralympian and blind surfer Matt Formston (not on a wave!) and why he plans to take on more of the biggest waves on the planet.
Speaking of Paralympians, a group of athletes are on their way to Paris, thanks to retailer Harvey Norman who has been sponsoring the Paralympians since 2019. Read more on pages 14-15
There is a very enterprising bloke in Alice Springs who has not let paraplegia stop him from setting up a successful hire car business and has some wonderful stories to tell on pages 20-21. Read between the lines and you will sense a few giggles!
Peruse our ATSA highlights, beginning on page 40, with a picture gallery of the ATSA awards winners. And want to know more about becoming a dedicated follower of disability fashion? Then turn to page 46 to find out.
The works of four fabulous artists from Studio A, finalists in this years Archibald Prize, are on page 16.
And we take you to the Queensland Performing Arts Centre to meet front of house Harry Quinn and his views on diversity in the theatre.
For article proposal, contact the Editor: kymberly@intermedia.com.au
For advertising, contact the Advertising Manager: Michelle Stevens 0419 822 717 mstevens@intermedia.com.au
Ready to embrace independent living?
Independent living means freedom and empowerment. It’s the joy of making your own choices, the pride in accomplishing daily tasks on your own, and the comfort of a space that truly feels like home.
At Endeavour Foundation, we know you can thrive with the right supports. So, are you ready to embrace new opportunities to grow and learn every day?
Learn how you can live your best life at endeavour.com.au.
Matt Formston breaks another record
Four-time Para Surfing World Champion, and former Paralympic cyclist Matt Formston, has taken his quest for sporting greatness to new heights. He set a new Guinness world record for the largest wave surfed by a vision impaired man, that has been captured in the new feature-length documentary, ‘The Blind Sea’, screening in cinemas nationally from August 15. The documentary offers an intimate and revealing glance into the mind and motivations of a man for whom being the best is never enough.
It all happened on November 30, 2022, on one of the world’s most dangerous waves at Nazaré, Portugal. And it took just 25 seconds to ride the 51-foot (15.24 metre) giant wave, Formston told Kymberly Martin “I surfed about two dozen waves while in Nazaré that involved lots of planning waiting for the right swell, and it arrived on the last day, when all the waves lined up for me at the last moment.
“I have been surfing big waves most of life but the biggest swells that hit the
Australian coast are nothing compared to those in the Nazaré. The way the waves come through the canyon triples the swell. Most waves in the world when they travel hit the topography which forms the profile of the ocean floor that dictates the shape of the wave. In Nazaré the shape of the wave is determined by the surface wave and the submarine wave that travels through the canyon makes it the biggest wave in the world. The merging of the submarine and surface wave form this giant triangle, and it is the only place
in the world where this happens which explains why the waves are so big.”
For his thoughts at the time: “I love testing myself, was going fast and having the time of my life.” Guiding him to this feat was one of the world’s best wave surfers Dylan Longbottom. This Aussie from Cronulla, Sydney, designed Formston’s board which carries 10 kilos of lead to help the board stay in the water as the waves are so big it prevents the board from being lifted out of the water.
Interestingly he filtered out the noise as another big wave legend Lucas ‘Chumbo’ Chianca, acting as his tow driver, identifies the right wave by blowing a whistle, a signal for him to steer him through the wave.
“Everything was happening quickly, it really is a life-or-death situation, another surfer died six weeks after we left in smaller surfing conditions. While being blind does intensify hearing I was concentrating so much on the whistle I did not hear the wave but when I did it resembled a bomb blast. The base, the pressure and the sound was incredible.” Formiston was diagnosed with macular dystrophy when he was five years old, leaving him with three per cent vision.
And when it was all over? “We packed up and headed for the airport and onto the Surfing World Championships in California which did not go well. “Surfing from as 51-foot wave to a one-foot wave just did not do it for me...actually it was more challenging than the 50-footer!”
A return to Nazaré and improve on his record- breaking effort but is up against the current world record of 92 feet for an able-bodied man.
In his non-surfing time, the 45-year -old hangs out with his three children,
Max, Elsie and Jake and wife Rebecca at his home on the NSW Central Coast, helping coach his son’s rugby league teams. He runs sustainability operations at Optus and sits on a few boards leaving surfing to take a back seat.
“Surfing is still a huge part of my life, but family and work commitments are eroding the surfing opportunities, but it is definitely still there.”
Ambitions? He still has a few
As for any other life-challenging ambitions on his radar Formston is toying with the idea of competing for a Paralympic record in freediving that involves swimming underwater without breathing equipment and while in Nazaré trained to hold his breath for up to six minutes. Visiting Egypt which has deep sink holes, or the Bahamas where they hold a lot of competition diving, is on the travel horizon.
And for the best waves in Australia, he said: “where there are no other people”. “Surfing boomed during Covid and the whole surf industry exploded. At the time I think I was one of the only professional surfers on the Central Coast but suddenly everyone had new surfboards and joined the ScoMo surf team that handed out money. It’s a good healthy sport but it has impacted the sport to some extent.”
He has had his share of shark encounters, from a six-metre white pointer at Lennox Head to a tiger shark that swam underneath his feet at Port Macquarie and very large bull sharks while scuba-diving in Fiji.
Formston prefers not seeing sharks on the surface but does not mind them under water “as they tend to interact with you differently, but generally, if you stay calm you will be ok.”
His message for everyone with, or without a disability is simply try things. “People get very excited about what I have done in my life, but I have taken every opportunity, so take what you can and push as hard as you can.”
With the BigWave SurfSafety team in Nazaré
Maintaining Assistive Technology to sustain quality
An important factor when choosing your AT provider is how well they support you with any after sales care you need. Astris PME has you covered! Our Programmed Maintenance Plan helps prevent small issues from escalating, ensuring your equipment performs optimally and remains safe. With mobile service technicians across multiple locations, we offer onsite repairs, maintenance, and adjustments. Our goal is to safeguard your equipment’s lifespan and keep you mobile. Trust Astris PME for exceptional after-sales care!
Explore the benefits of our Programmed Maintenance Plan
Trikes & Bikes
Art galleries, accessibility and artificial intelligence
Iam on the fence about artificial intelligence, I want to embrace this technology, to work with it to improve my teaching and learning. I have no doubt that my students want the same thing- yet too often the work is generated too much by a Chatbot. The student is not involved in the creation of the work.
AI has huge potential. We work with it, to enhance creativity and access to the creative arts. One example is the Rijksmuseum in Amsterdam. The museum has worked with the software to bring the creative arts to art lovers who are blind and or with low vison, and by doing so, have made the artwork accessible to everyone. Over a million artworks in the museums online collection have a detailed description, that includes, colours, mood and tone using AI.
The collaboration with Microsoft realised a project in a number of hours, that if undertaken by people alone would have taken hundreds of years.
Now the online collection is available to everyone.
The collaboration between AI and people can be powerful. Subject matter experts and art lovers with a lived experience of disability were involved in this project, one participant in the research, born with a vision impairment, spoke about having a passion for art as well as her sadness and feeling of being excluded from discussions about art because of the focus on visual representation.
This tool allowed her access, not only to the artwork but to a conversation about the artworks, and she reported she felt welcomed.
Another research participant, with low vison and hearing loss discussed how the spoken words, due to the richness of their description gave her a means to paint the artwork in her imagination.
An example of this can be found here: Close your eyes and see this
AI is also removing barriers to creativity by making the art process accessible to everyone. Just as the artwork above was brought to life by description, this can be the source of generating and making new works of art. Image generators such as Dall-E3 and Midjourney take a text prompt to create art. Audio descriptions can be used by artists who are blind, or vision impaired to explore colour and texture.
The potential of AI is exciting; however, its true power can only be realised in collaboration with people. For artists with disabilities to fully express themselves, the technology must honour their involvement and perspectives, it is created together.
Now, I have to help my students do that.
Dr Olivia Karaolis, lecturer, Special & Inclusive Education, University of Sydney.
Impact Institute Disability Expos – across Eastern Australia
The Impact Institute's My Future, My Choice Disability Expo program spans nine locations across Eastern Australia, making it the largest Disability Expo program in Australia. Discover a diverse range of exhibitors showcasing the latest products and services designed to improve the lives of people with disabilities. From cutting-edge technology and adaptive equipment to healthcare services and educational resources, there's something for everyone.
Explore all you need in one place. The expos offer a wide array of exhibitors offering services such as mobility aids, home modifications, accessible travel options, financial advice, and more. It's a one-stop shop for enhancing your quality of life. Enjoy the ease of having everything under one roof so you can spend your day gathering information
My Future, My Choice
and making connections all in a single, convenient venue. Experience an inclusive, welcoming atmosphere where everyone is valued and respected. The event is designed to be fully accessible, ensuring that all attendees can comfortably participate and engage with exhibitors and activities.
Navigating the complexities of the National Disability Insurance Scheme (NDIS) can be daunting, but three expos, Canberra Disability Expo (September 6-7) and Brisbane Disability Expo (November 1-2) and Melbourne Disability Expo (November 22-23) has everybody covered. They offer comprehensive solutions to empower every person with a disability and their families.
"The transition to the NDIS has proven complex and challenging, our Disability Expo serves as a crucial resource,”
Impact Institute senior advisor, Kathryn Carey said. By collaborating with local disability representatives, the expo ensures real, meaningful solutions to empower people with disabilities. "We've noticed businesses increasingly offer innovative services in response to evolving needs. The expo has become an informative destination that allows people with disabilities and their families to interact directly with providers,” she said.
Attendees attest to the expo's impact, with one first time visitor praising it. “My first Disability Expo and I was very impressed and will be back again.”
Covid-safety measures provide on-site first aid, and quiet time sessions to support people with sensory sensitivities, creating a calmer, less overwhelming environment.
The 2024 My Future, My Choice Disability Expo program is half way through the year, and so far, we are thrilled by the success of each event! Our Geelong, South West Sydney, Hunter & Gold Coast Expos have all seen record numbers of attendees, excellent Ambassadors and stage performers, and hundreds of sponsors & exhibitors. Our Expos aim to unite disability product and service providers with attendees while sparking creativity and empowering attendees for a brighter tomorrow.
Each Expo runs 9am-3pm over Friday & Saturday, and best of all, entry is FREE!
We have limited exhibitor space left for 2024, and the 2025 Expo Program now selling, so get in contact to secure your spot! More choice, more impact from Australia’s biggest disability expos
Navigating accessible living with the Endeavour Foundation
When you think about "accessible housing,” what comes to mind? Maybe handrails and ramps? Those are definitely part of the picture, but there's so much more to it!
At Endeavour Foundation, we're all about helping people with disability live as independently as possible. We offer two main supports to achieve this:
1. Support Independent Living (SIL): This utilises NDIS funding to provide in-home support. You can receive SIL at either your current home, or at one of our accessible, purpose-built shared homes.
2. Specialist Disability Accommodation (SDA): We offer purpose-built, accessible homes where you can live in with housemates, supported by 24/7 care. But where do you start on your journey to independent living? Let's find out.
Meet your allies: Plan Manager vs. Support Coordinator
Before diving into independent living, it's essential to know your allies. Your plan manager helps you keep track of your funds, while your support coordinator connects you with services like ours and helps implement the supports in your plan. They're like your guides on this exciting journey to independence.
The power of support staff
Whether its support in your own home, or with your housemates in a shared home, it's the support staff that truly make a difference to independent living. From helping with daily tasks to providing companionship, our staff ensure everyone feels safe and supported. We take pride in not just helping people with disability to live independently, but empowering people to thrive.
Growing independence with SIL
If you’re curious to learn new life skills and grow your independence, we’re here for you. With our recent expansion of SIL from Queensland into New South Wales and Victoria, chances are you can find us in your area. More SIL options means more people can live independently, and we’re all for that!
Making the move to an SDA home
We believe an SDA home should be more than just a place to live—it should be a home. That's why we work closely with each housemate to customise their space. From accessibility features to personal touches, we're here to make sure your new home truly feels like yours. All our SDA homes are in Queensland, visit our website below to find one near you.
Why accessible housing matters
Accessible housing isn't just about functionality - it's about independence. Just ask Russell, one of our happy housemates! ‘It was a good decision to leave home. I am happy. I have a big, big room in a big, big home,’ Russell said.
Since moving into one of our homes, Russell has embraced his independence, taking on the role of chef and thriving in his new space.
Ready to take the leap?
If you're ready to start your journey to independent living, we're here to help. Visit our website to learn more about Supported Independent Living or Specialist Disability Accommodation and take the first step on your pathway to independent living today.
Call us on 1800 112 112 or visit https:// www.endeavour.com.au/disabilityservices/accommodation/supportedindependent-living
Register now! Brain Injury Conference - Adelaide
Brain Injury Australia’s 9th National Brain Injury Conference will be held from September 24-26 at the Adelaide Oval, South Australia. The conference is one of the leading learning and development events on the disability calendar, driving improvements in services and supports for people living with a brain injury, their families and carers.
There are three pre-conference workshops on Tuesday September 24: Domestic & Family Violence & Brain Injury; Concussion/“Mild” Traumatic Brain Injury – a practical workshop on optimising multimodal assessments; and Behavioural Disability Following Brain Injury – an introduction to Positive Behaviour Support Plus.
On Day One, a joint opening address and international keynote address on Wednesday 25th will be given by Ché Phillips and Bruce Powell with Professor Mark Bayley, Coriat Family Chair in Rehabilitation Innovations at The University of Toronto, Canada.
There are 12 conference sessions on Day One, with topics covering children, peer support, employment, innovations in therapy, sexuality, brain injury in the military and technology.
A plenary session: ‘From Bench to Beside to Bedroom: Where’s Quality And How Do You Find It; And What’s Best Practice And How Do You Do It? is facilitated by Professor Mark Bayley and Professor Jennie Ponsford, Professor of Neuropsychology and Director of Clinical Programs, School of Psychological Sciences, Monash University.
The day concludes with a film, ‘The Rider’, winner of US National Society of Film Critics Best Picture Award 2019. It follows a cowboy’s struggle for purpose after a traumatic brain injury (TBI) ends his career on
America’s competitive rodeo circuit. The film stars, Brady Jandreau, who suffered a TBI in a rodeo accident, and will join the conference from South Dakota.
The international keynote address on Day Two will be presented by Associate Professor Eve Valera, from the Harvard Medical School and Massachusetts General Hospital. The first session also introduces, ‘Tools for Ageing Well with Traumatic Brain Injury’ the first Australian resource of its kind.
A plenary: ‘Concussion/Mild Traumatic Brain Injury’ is facilitated by Professor Mark Bayley. Each year in Australia around 180,000 mild TBIs occur. Concussion can be difficult to diagnose and the management of symptoms that persist remains challenging.
Conference sessions on Day Two cover domestic & family violence, housing and mild traumatic brain injury.
Brain Injury Australia is the peak advocacy organisation representing
over 700,000 Australians living with a brain injury. Alongside providing policy advice to Commonwealth, State and Territory governments, and representing consumers on a range of advisory groups, the organisation drives multi-year public education campaigns on: the leading cause of TBI; people with a brain injury in the criminal justice system; the leading cause of death and disability in children who have been abused; TBI in the military; women, domestic and family violence and TBI; and concussion in sport.
The conference is supported by the South Australian Government, The University of South Australia and Brain Injury SA.
Discounted registration is now open, and spaces are strictly limited.
Register for the conference, here
For more information contact Interpoint Events on: 1300 789 845 or info@interpoint.com.au
Harvey Norman – going the distance for our Paralympians
Harvey Norman has been supporting sport in Australia for over 30 years. CEO Katie Page spoke to Kymberly Martin as the countdown to the Paralympics in Paris begins.
This sporting tailwind from Australia’s biggest retailer has been a work in progress that started with the Commonwealth Games in 2017, to the Sydney Olympics in 2000 and pre-Covid when collaboration with the Paralympians gathered momentum. A partnership that began in 2019 with Paralympics Australia continues until at least the end of June 2025.
For Harvey Norman its commitment works in different ways, from financial support for athletes through to special programs and advertising. “Anything positive like this that you can give extra time too is important so lots of people are seeing it because the Paralympics don’t get a lot of coverage,” Page said. All print advertising carries the Harvey Norman logo and Olympic and Paralympic icons.
“Last year we renewed our 3-year partnership with the Paralympics for a further two years while also announcing our new partnership with the Australian Olympic committee. It’s in our DNA, we are passionate about supporting and celebrating our Australian athletes from any level to the highest level and representing our country across a wide range of sports,"she said.
“Working with the Paralympics allows us to profile, support and highlight these athletes incredible stories, journeys and athletic brilliance. Our aim is to drive awareness of diversity and inclusion by supporting an all-inclusive Australia and inspiring the next generation of young Australian athletes.”
The multifaceted sponsorship approach that runs through to the
games includes Paralympic programs, podcasts, education modules, content series and blogs that profile each athlete and their journey, to internal employment programs.
“We run corporate Para tough cups with over 150 staff to educate the Paralympic movement, with the opportunity to meet Paralympians while getting involved with over five Paralympic sports. We also work with Paralympics Australia on Para-sport days in metropolitan and regional areas which is a great opportunity for staff of all ages to come along and learn more about how to get involved with Para sports,” Page said.
“From a corporate perspective we do the branding, but at the grassroots level it’s critical to get everyone on board, not just in the cities but in regional centres too, such as working with Paralympians in their communities.”
And this Paralympics Games visibility under the Harvey Norman banner is going global. “We employ 20,000 people and have prepared education modules talking about diversity and inclusion in the Paralympics and Olympics, so staff know what we are doing and how we are supporting athletes,” she said.
On top of this support the retailer also ran its biggest ever national corporate promotion “Money Can’t Buy” win a trip to Paris, which received nearly 10,000 entries.
The retailer will have a presence in the Paralympic Village, creating a Harvey Norman chill out zone, with bean bags, Harvey Norman furniture and charging stations. Each Paralympian will receive an international charging kit and an
exclusive Harvey Norman bespoke Paralympics Australia power bank to keep the athletes charged for Paris. All corporate offices and stores are sending messages via a digital screen on the charging station.
Championing support at all levels
The retailer has supported a range of Paralympians over the years with Katie Kelly and the Sport Access foundation and more recently, Paralympians Madison de Rozario (Para-athletics), Chris Bond (wheelchair rugby) emerging Para-athletes Montana Atkinson (Para-swimming) and Hudson Wan (Para-swimming).
“Harvey Norman is just one of many companies amplifying the voices of Paralympians and advancing inclusivity and accessibility in Australian sport.”
According to Page, Paralympians are an inspiration, particularly for young people when they see the extraordinary achievements of, for
instance, a champion athlete Madison de Rozario who appears in the group’s television advertising.
“Harvey Norman is just one of many companies amplifying the voices of Paralympians and advancing inclusivity and accessibility in Australian sport,” she said.
But Page also has words of encouragement for young athletes such as 10-year-old Hudson Wan and emerging Para athlete from the Gold Coast, Montana Atkins.
“What I get out of talking to young people like Montana, Hudson and Madison, goes way beyond what we are doing for them. None are ‘woe is me types’ they just want to be the best they can be and role models to athletes of all abilities.
“Because most are not going to be in the Paralympics, and for those young ones or anyone with a disability, what they have achieved is wonderful. I can do all the publicity and put it out there but the most inspirational thing happening to them is having a profile, so people with disability can see what they are accomplishing.”
As for Paris, Page could barely contain her enthusiasm for what she believes will be the most exciting Olympic Games ever and the audience will be “off the charts”.
“The French are doing such a good job of showcasing all the sports that will deliver the biggest ever global audience for the Olympic and Paralympics that will be visually fantastic.”
Paris will be your fifth Paralympic Games…any other contenders for this number or more?
Yes! Quite a few. My teammate and one of my best friends, Angie Ballard who is co-captaining this team is heading for her seventh games here.
Is there anything that really excites you about the Paris games?
It’s an absolutely surreal experience every time you get to compete at a Paralympics. Five Games may be a lot, but five times getting to do something so unique across a lifetime does not give you the time to ever get used to it.
What is on your must do/see list in Paris?
Just 42km of road for me, baby!
Who or what inspires you? Or who do you most admire and why?
I am an amalgamation of every person I’ve ever come across, and been inspired by, in some small way.
How do you relax?
I take my little dog on long walks along the river and call home while I’m out.
Message for anyone reading this interview with hopes of competing in the Paralympics? Try every single sport you can get to. It took me a long time and lots of different sports, and a very patient mother, to find wheelchair racing.
Madison de Rozario
Archibald Prize finalists
Studio A, a Sydney enterprise that works with artists with intellectual disability had four finalists in the Archibald Prize this year. This Australian portraiture art prize for painting, is regarded as the most prestigious portrait prize in Australia.
Congratulations to Daniel Kim, Emily Crockford, Megan Pelham and Thom Roberts.
Over the past five years the studio has had 18 artworks selected as finalists in the Archibald and Sulman Prizes.
Studio A artists get practical support on how to create CVs and portfolios, market their work, network with industry professionals, secure grants and understand the legal rights of the work produced.
‘My Selfie’ by Emily Crockford
Synthetic polymer paint on canvas.
“This painting is a selfie. I saw it in my dreams,” the four-time Archibald finalist said. “I am on top of the world with blue sky behind me, with love hearts and flowers and a building in St Leonards where our studio is. There are the words ‘art’ and ‘love’ in the background and some of my artworks too. I am smiling in this painting, dreaming in the sky and singing in my mind. I am dreaming of my art and my patterns. This painting makes me feel happy and lovely. I am a professional artist, and I am proud, and I think my Dad would be proud of me.”
Crockford’s father featured in her 2020 Archibald self-portrait, which she painted to honour him after his death that year.
‘Blue Jeans and Flowers’ by Daniel Kim
Synthetic polymer paint on canvas.
Laura Jones, the winner of this year’s Archibald, and brothers Ed and David Liston are co-founders of the Incognito Art Show. Founded in 2021, the notfor-profit organisation raises funds
to support artists with disability by selling small artworks for $100. Buyers discover the name of the artist after
their purchase. In 2024, the funds will go to Studio A and We Are Studios, both in Sydney.
Emily Crockford
Daniel Kim
“I have painted Ed, Dave and Laura. They are friends. I want to thank them for being my subjects and for inviting artists to enter Incognito. I have entered the last few years and I enjoy it very much,” the two-time Archibald finalist Daniel Kim said.
“I went to Laura’s studio to do some drawings of them. Laura’s studio has painted walls, and paint drips and splashes on the floor. Laura had some beautiful flowers in vases. This is the biggest canvas I have ever painted. Ed and Dave wore their
Incognito shirts, and they were all wearing blue jeans.”
‘Highlights in the Moonlight’ by Meagan Pelham Ink, gouache, synthetic polymer paint pen, gold and silver foil, and glitter spray on paper
“This is Isabella. She is a marvellous person, amazing. She is a curator and I met her when I was working on Love owls and mermaids singing in the rainbow pop, a mural at the Art Gallery of New South Wales. She was amazing to me, my favourite, the highlight of my time,” two-time Archibald finalist Pelham said. She painted the mural in 2020.
Isobel Parker Philip was appointed director of curatorial and collections at Canberra’s National Portrait Gallery last October.
“I miss her. She got married to a beautiful husband and wears a pearl love ring and I am so happy for her. She came to visit our studio for the portrait. She looked so beautiful and wore a beautiful black outfit with red lipstick. She was like a top model in moonlight.”
Big Bamm-Bamm by Thom Roberts
Pencil sketch with acrylic paint.
“This is Big Bamm-Bamm. His real name is Ken Done, but I call him Big Bamm-Bamm after Bamm-Bamm Rubble in The Flintstones . I like to rename people and places, and I love The Flintstones,’ the Archibald finalist Thom Roberts who was represented in this year’s Sulman Prize, said.
“Big Bamm-Bamm is an artist like me and sometimes he paints the Harbour Fridge [Bridge]. I met him at Pink Panther Gallery [Mosman Art Gallery] when I had an exhibition there. He also visited Studio A and bought my cow sculpture. He told me, “I love your artwork.” I used the money to buy coffees! I sketched him when he came to Studio A. I made it a big portrait, and I painted him with cat’s ears. People ask me, “Why did you paint him with cat ears?” And I said, “Because I do it Thom’s way.”
Meagan Pelham
Thom Roberts
Mobility Support For All – Let’s Get Moving!
In 2020, the World Health Organisation (WHO) updated its guidelines for physical activity, highlighting the health impacts of sedentary behaviour. These guidelines were designed for children, adolescents, adults and older adults. For the first time they included specific recommendations for physical activity for people of all ages living with chronic conditions or disabilities, emphasising that the health benefits generally outweigh any risks.
According to the WHO:
“Children and adolescents living with disability should do at least an average of 60 minutes per day of moderate to vigorous intensity physical activity, mostly aerobic, across the week.” Additionally, they “should limit the amount of time spent being sedentary, particularly the amount of recreational screen time”.
Furthermore, “Adults living with a disability should do at least 150–300 minutes of moderate-intensity aerobic physical activity per week”, along
with “muscle-strengthening activities at moderate or greater intensity that involve all major muscle groups on 2 or more days a week”.
Given that physical activity will look different for each person, how can we support individuals of all ages to meet these guidelines?
One effective way is through supported gait. Supported gait is beneficial for most ages and abilities. For those with significant physical disabilities, simply standing upright and engaging in supported gait can trigger the physiological responses associated with moderate-intensity physical activity. This exercise can be seamlessly incorporated into daily activities, enhancing mobility and improving quality of life – we feel better when we get to be upright and moving.
Implementing supported gait training at home, school, and other environments can be challenging for therapists and families. Key considerations include:
• Setting goals: Establish gait trainer use goals based on the client’s “age and stage”. Various gait trainers and accessories are available to provide the appropriate level of support.
• Assessing support needs: Evaluate support needs across all environments, including input from family and other support people. Support requirements may vary between indoor and outdoor settings and across different terrains. Don’t forget transfer types, strategies and skills either.
• Accommodating changing needs: Consider both daily and longterm changes in support needs. An easily adjustable gait trainer is often the best choice for frequent adjustments.
• Transport requirements: Determine if the gait trainer needs to be portable. Choose features that ensure the gait trainer provides the necessary support while being easy to transport or decide if different solutions are required for varying environments.
• Regular reviews: Continuously review the user’s needs to ensure the gait trainer remains suitable. We all change, so just because you find the ‘perfect’ solution one day doesn’t mean it will remain suitable. This may only mean an adjustment of physical supports or type of support accessory, but never underestimate the influence of these parameters on successful gait trainer use.
And the final word from WHO, “Even some activity is better than none”, so let’s make it happen.
The team at Astris PME, with their wealth of knowledge and extensive range of gait trainers, is always ready to assist.
At Knowable Me, we know that to truly understand the needs and wants of people with disability, we need to listen to everyone involved in their lives. This means including not just the individuals themselves, but also their families, carers, and support workers. You see things from a different angle, and that can make a big difference.
Family members, carers, and support workers often notice the little things –the everyday challenges and the small victories. These insights can help us see the bigger picture and understand the needs of the disability community better. Your unique perspective can lead to changes that make life easier and more enjoyable for everyone.
Take Sarah, for example. She cares for her son, who has an intellectual disability. Sarah answered our survey about self-serve checkouts and the elements of that experience that make independent shopping difficult for her
son. By sharing her observations with us, she helped highlight a widespread issue. We then use this feedback to advocate for better accessibility in supermarkets, benefiting countless others in similar situations.
By sharing what you see and know, you're giving a voice to those who might not be able to speak up themselves. This makes our research more inclusive and representative of the whole community.
We need your help to make a real difference. By joining, you're not just helping us – you're helping to create better products, services, and policies for people with disability. And yes, you'll be rewarded for your valuable insights.
Every piece of information you provide contributes to a larger effort to create a more inclusive and accessible world.
So, if you're a family member, carer, or support worker, we invite you to join us. Share your stories and experiences with us. Together, we can make things better for everyone.
Visit our website to sign up and start sharing your insights: knowable.me/ signup
A ‘wheelie’ moving story
Colin Dawson was the first paraplegic to get a taxi drivers licence in the Northern Territory, but it was the last thing on the 17-year old’s mind as he lay in Sydney’s Royal North Shore hospital with a broken back following a motorbike accident nearly 40 years ago. He recently achieved another first…installing hand controls in his Tesla car that he operates as a private hire service in Alice Springs. But it has been a long journey to where he is now. He spoke to Kymberly Martin.
As Dawson recalled he was not in a happy place in hospital. “I was not pleasant to anyone and that included my doctor, my parents and friends.” But another paraplegic, Errol Hyde came into his ward and according to Dawson, “if it was not for him, I doubt I would be speaking to you today.”
Sitting in his wheelchair, Hyde went across to Dawson where he reproached him about his behaviour, tossing a handful of Sport N Spokes, a publication about people with spinal cord injury, onto his bed.
Hyde was blunt, “he said what I was going through he had been there and
done it for 50 years, but I told him to go away… then I read the magazines and overnight my attitude changed. When my doctor came in and asked how I was feeling my usual response was unprintable! However, on this particular morning I told him I was fine and asked what our next step was and how to handle it. He was surprised at the now ‘Mr nice guy’ and pointed me in the right direction”.
“Being in a wheelchair is not all that bad if you are prepared to put some effort into it and there are plenty of sports out there to get involved in, which I did, such as water skiing, pistol shooting and track and field. I went to world championships and did
a demonstration at the Sydney 2000 Olympics trying to get eight ball pool recognised, although as it is now a professional sport it could be accepted into the Olympics and Paralympics.”
Driving his way to recovery
After leaving hospital Dawson joined a security company in Sydney, one of the few offering work to people with disability. He later moved to Tamworth and took up another job in security when his ex-partner decided to relocate to Alice Springs with their children. But he missed his young kids, Jonathan and Jayden, and moved there in 2005. He met up with Gary Hapke who owned Territory Taxis and got a job in the control room, where
Colin Dawson with British High Commissioner Vicki Treadell.
the able-bodied he believed were not performing to the standard expected. “When I asked Gary if I got my licence would he let me drive a taxi he said yes, and the next stage in my life was set.”
First had to get his ‘h’ endorsement, a Northern Territory requirement for all drivers of a commercial passenger vehicle. Then it was a medical check from his doctor. His regular GP was not available and the consultation with the locum did not start well. “You could say we locked horns because in my view he was thinking outside the box. When I questioned what the problem was, he said if he asked 20 of his closest friends, they would have an issue with someone with a disability driving a taxi.”
Dawson left the surgery, went home, wrote details of the medical statement on an Excel form, went to Alice Springs Todd Mall for about one and a half hours and asked everyone who walked past, “I am looking at getting my commercial drivers licence would you have a problem being in my vehicle? He got 100 signatures, and 99 said no problem except for one who wanted to know who was going to lift her luggage. And I said if you packed it, then you should be able to lift it!” He returned the document to the GP who signed it under risk of court action and disability discrimination.
In 2015 Dawson was allocated a taxi plate which he still owns and operates. He started driving for Territory Taxis that merged with Alice Springs Taxis, working in training operations, before being appointed manager, but six years later in 2019 decided to open a business, Wheelies Private Hire.
A friend who just happened to be an electric car fanatic persuaded him to buy a Tesla model S, a decision he does not regret. (And no, he did not get a discount!) “It costs me $25-$35 a day to run, that gives me from 300k-500k a day. Going to Uluru which is 450K one way he did a recharge at Erluenda and Uluru.
Welcomes new recruit
He just bought his second Tesla, a model Y, and given the job of driving to Shane Schinke, an incomplete quadriplegic.
Schinke, who can get around with crutches, spent seven years in a wheelchair, following damage to his spinal cord from a virus infection. He has lived in Alice Springs for eight years and was a remote area nurse before his injury. He has an unrestricted licence that allows him to drive a manual or automatic car, but his mobility issues do place limits on him when it comes to helping passengers.
Both Tesla’s have special hand controls installed by Total Ability.
As for his new job: “It’s fantastic and a great opportunity, because it’s not easy to get work when you have a disability”, Schinke told Link. “You are isolated and access to many things is limited. I look forward to networking and meeting people, and quite frankly being useful. We need to highlight the positive things people with disabilities who are working can do, but unless you start your own
business it is often difficult to find employment. I am very happy to have been given this job,” he said.
Dawson recently completed trips to the Ellery Creek Big Hole near the Ormiston Gorge with 60k walking trails that are popular with the tourists. One of the biggest is the Lara Pinta marathon that takes place from August 16-19 with 200 runners taking part, that sold out months ago. However, most of his business comes from lawyers and doctors doing fly in and flyouts to the local communities. But he also took the British High Commissioner Vicki Treadell on a three-day trip to several locations including Telegraph Station Historical Reserve, the original site of the Alice Springs township. According to Dawson, the high commissioner, “loved the landscape”.
When it comes to the NDIS be believed while it has been great for some participants and helped him, there are people not qualified and making the wrong decisions. “An example of this is someone receiving a $50,000 wheelchair that is not used while my request for a $5000 chair was rejected after being told I don’t need it. The NDIS won’t help fix the modifications made to my home which is a shambles. After 12 months they won’t make the builder accountable, so I am doing it myself.”
As for hobbies, he is still into speed, which probably explains how he became a paraplegic. “I love fast cars and fast bikes and have not learnt my lesson as I still ride a motorbike, a Canam 3-wheeler with all controls on the handlebars and a small adaption to the brakes.”
And he has the Firefly that made headlines a few years ago when the Northern Territory police, “who got bored one day, pulled me over and told me I could not use it as it needed to be registered as a motor vehicle!”.
As for advice to those with a disability: “It’s not all doom and gloom and there is no point in sitting around and feeling sorry for yourself so get out there and have a go. I have been in a wheelchair since 1985 and admittedly it’s not a bed of glory but don’t let it beat you.”
Colin Dawson & Rambo
Pause for thought
By Martin Wren*
‘In the United States, the main disability employment program is the Ticket to Work program, which offers individuals with disabilities access to employment support services and vocational rehabilitation.
According to data from the US Department of Labor, the employment rate for individuals with disabilities in the US has been steadily increasing over the past decade, with nearly 20 per cent of individuals with disabilities now employed. However, the unemployment rate for individuals with disabilities is still significantly higher than that of the general population.
In Australia, the main disability employment program is Disability Employment Services, which provides job seekers with disabilities access to a range of employment support services, including job coaching, skills training, and job placement assistance.
According to the Department of Social Services, the employment rate for
individuals with disabilities in Australia has been steadily increasing over the past decade, with nearly 40 per cent of individuals with disabilities now employed. Additionally, the unemployment rate for individuals with disabilities in Australia is lower than that in the US.
“In the world of work, we can expect that AI means considerable and unpredictable change”.
Overall, while both the US and Australia have made progress in increasing employment opportunities for individuals with disabilities, Australia appears to be slightly ahead in terms of the employment rate and unemployment rate for individuals with disabilities. However, both countries continue to face challenges in ensuring
that individuals with disabilities have access to meaningful and sustainable employment opportunities.’
Pause for thought? Not for the figures, all they do is highlight how slow real progress is. I think ‘pause for thought’ because this piece (above) is 100 per cent the product of artificial intelligence and took me approximately one minute.
Separately I applied the AI touch to compare some of my original work with the same material washed by AI. The result? The honest answer was that I came second.
Where are we going and what does it all mean? In the world of work, we can expect that AI means considerable and unpredictable change. For all of us, including people with disability, change equals opportunity so put your thinking caps on.
*Martin Wren, CEO and founder of NOVA Employment.
Introducing WorkAbility Expos: Beyond Possible
Six reasons to attend a WorkAbility Expo
Learn how you can take control of your employment journeydiscover the opportunities waiting for you at our WorkAbility Expo’s. Our mission is to create an inclusive environment where job seekers with disabilities can connect with employers committed to diversity and inclusion.
Choice and control. These powerful words embody a desire by people with disabilities to live, act, and contribute to society in positive, empowered ways. At the WorkAbility Expo, this vision becomes a reality. Here are six reasons why attending a WorkAbility Expo can transform your employment journey:
1. Meet Top Employers Committed to Diversity
At a WorkAbility Expo, you’ll have the opportunity to connect with employers who are genuinely committed to diversity and inclusion. These organisations understand the value of a diverse workforce and are eager to discover your unique talents and strengths.
2. Participate in Practical Workshops
Our workshops are designed to equip you with the skills and confidence needed to excel in your job search and beyond. With a focus on workplace readiness, these sessions offer invaluable insights from experts who are here to help.
3. Access a Wealth of Resources and Support
Navigating the job market can be challenging, but you don’t have to do it alone. WorkAbility Expo’s provide access to a variety of resources and support services, including employment guidance, accessibility assistance, and information on legal rights and workplace accommodations.
4. Get connected
Networking or talking to people who can help you is critical to finding employment. At our WorkAbility Expo’s, you’ll have the chance to meet not only potential employers but also peers who share similar experiences
and support organisations that can offer guidance and resources.
By attending, you’ll make connections with people who can help open doors to your new employment possibilities.
5. Overcome Employment Barriers
We understand that job seekers with disabilities face unique challenges in the job market. The journey to meaningful employment can be challenging, but our WorkAbility Expo’s are designed to break down barriers and pave the way for a brighter future.
Attendees will have the opportunity to meet with potential employers at open, expo-style stands and interactive meeting spaces creating a supportive environment for finding meaningful employment.
6. Be Part of a Community Committed to Change
Together with employers, people with disabilities, and the community, we strive to create lasting impact and foster change. We believe ongoing partnerships, engagement, and positive conversations facilitated through these events will lead to a more inclusive and equitable employment landscape.
Join us at our WorkAbility Expo’s and take the next step in your employment journey. With a wealth of resources, support, and opportunities available, you can unlock your potential and achieve your goals.
If you are a job seeker or an employer wanting to be involved in WorkAbility Expo’s, please visit our website for all information: www.workabilityexpo.com.au
Beyond Possible
Adventure awaits new Pathrider Endurance
Pride Mobility have been on this journey for a while, building highperformance travel and mobility units that meet the needs of users and help them reach new milestones.
In keeping with the adventurous spirit of Pride Mobility’s Pathrider Range, the Pathrider Endurance is engineered to excite and built to endure.
Whether you're navigating a paved road or tackling rugged terrain, this scooter invites you to expand your horizons and chase the joy of adventures.
The Pathrider Endurance is loaded with premium features like front and rear suspension and a full lighting package, transforming the impossible into possible.
As durable as it is nimble, with durable plastic shrouds, it can handle brush, branches, and mud like it’s nothing.
Key features:
• Swift cruising speed: Travel at a brisk pace of 9.7km/h.
• Impressive range: The lithium-ion battery ensures long-lasting power and reliability, providing up to 54.7 km on a single charge.
• Pneumatic tyres: Conquer any terrain with ease, from smooth pavements to off-road trails.
“We are excited to launch the newest member of the Pathrider family. The Pathrider Endurance is the perfect companion, making every ride an exciting new adventure,” Pride Mobility Australia director of sales and marketing, Mathew Herbert said.
The Pathrider Endurance proves that the best adventures are yet to come.
With its fast cruising speed, substantial
weight capacity, and pneumatic tyres, it can tackle any road (or backroad), putting thrill-seekers on the path to excitement.
Fully equipped with premium features, a ride like this makes anything and everything possible.
Embrace the adventure with Pride Mobility’s Pathrider Endurance - your perfect companion for every journey ahead.
Designed to endure
To view the full range of Pride Mobility scooters, including the Pathrider Endurance, visit Pride Mobility Scooters .
Or view on the PQ365 app, available to download on the App Store or Google Play.
For more information, visit: Pathrider Endurance.
Built to handle adventures
Dual rear view mirrors
Angle adjustable tiller with a USB charging point
Large, tiller-mounted front basket
Enhanced LED lighting for optimal visibility
Front and rear CTS suspension
Pillow top, high-back seat with lumbar support
Durable plastic shrouds for navigating through brush, weather and transport
Dual Lithium batteries
Pneumatic tyres mounted on split rims for off-road thrills
Freedom to travel safely
Embarking on a journey with Freedom Motors Australia entails more than just selecting modifications for wheelchair access; it's about ensuring utmost safety and security for passengers and their mobility aids during transportation. Amidst the myriads of options, the pivotal choice lies in how to safely transport both the wheelchair and its occupant within the vehicle.
The Australian Government suggests that the safest method of travel is to transfer into a seat and wear a vehicle seatbelt, or for children under eight years, to sit in an approved child car seat as required by law. However, we acknowledge that for many individuals, transferring into a seat isn't always feasible due to mobility constraints or the strain it places on caregivers.
Recognising the importance of accommodating to diverse needs, when the decision is made that transporting in a wheelchair presents the ‘lesser risk’, alternative options come into play. We offer a range of solutions, from restraint equipment to docking systems, designed to securely anchor both passenger and wheelchair within the vehicle.
While there are currently no specific legal requirements regarding which wheelchairs can be used within vehicles, adhering to manufacturer guidelines and safety standards is crucial. We recommend considering wheelchairs compliant with AS/NZS 3696.19:2009 for transportation, emphasising features such as adequate
back and head support, integrated postural devices, and secure wheelchair cushions. Additionally, removing ancillary items during transit helps mitigate potential hazards.
According to the current International Organisation for Standardisation (ISO), restraint equipment only needs to withstand the load from a wheelchair weighing up to 85 kg. However, we find these standards inadequate given that most wheelchairs exceed this weight limit. We offer a range of heavy-duty restraining systems to meet higher weight capacities. Our standard modifications include Quick-Secure front electric and rear manual restraints equipped with Quick Connect fittings, which are also compatible with L-track fittings. Additionally, we provide heavy-duty options developed by DAHL Engineering, featuring restraints capable of supporting 170 kg and 200 kg or more. Any of these options simplify the securing of the wheelchair and is now industry standard.
Alternatively, docking systems also offer several significant benefits that enhance the transportation experience for a wheelchair user. Docking systems can be used for
any seat in the vehicle, allowing for quick and secure attachment of the wheelchair, with minimal effort or need for manoeuvring. This makes them especially good for drivers looking for an accessible restraint option to replace the driver’s seat, allowing for someone to drive from their wheelchair. The wheelchair is released simply by pressing a button on the control panel located at either the front or rear of the vehicle. Another notable feature is that a docking system improves the working environment considerably for those who often struggle with crammed space and bad working positions when tying down a wheelchair.
Freedom Motors are Australia’s only supplier of DAHL docking systems, including the MKII and Variodock. These are the first systems on the market to be tested in accordance with EU Safety & ISO Standards, proving to be so strong that it can withstand a load corresponding to wheelchair weight of more than 200 kg+, providing a high level of safety and stability and ensuring the wheelchair remains secure during transport. There is also an extensive list of wheelchairs that have been crash tested to utilise the DAHL docking systems.
Freedom Motors combine technological innovation with a commitment to safety, providing an array of tailored solutions to empower wheelchair users to travel securely and comfortably. As we continue to innovate, we are dedicated to ensuring that every journey using our products is as safe and enjoyable as possible.
If you would like to know more about Freedom Motors solutions, contact us on: 1800 672 437 or visit our website: www.freedommotorsaustralia.com.au
munevo DRIVE: turning heads and powering mobility
Alternative drive controls for power wheelchairs are not a new concept to the Australian market. In the quest to trial the vast range now available to most models of power wheelchairs, the end goal for the user is the same; gain or maintain independent control of power wheelchair features and mobility.
How does the prescribing therapist and consumer start to navigate this market?
required to operate the alternative control unit.
For individuals who can drive with the movement of their head, the munevo DRIVE smart glasses provide a solution through a less stigmatising and more comfortable control system. The Google Glasses App was developed during a university course at the chair of business informatics at the Technical University of Munich.
and, compared to many conventional controls, barely noticeable. The glasses have six hours of battery life with one full charge and quick adjustability that takes 15 seconds to recalibrate.
Another advantage is that the head control can be used in all sitting positions, even if your head is slightly tilted. By simple calibration you adjust the starting position and are ready to go again.
It all comes down to the sustained function of the end user and which area of their body will provide controlled muscle activation and movement?
A thorough biomechanical assessment should be completed by a trained allied health professional.
When a stable base of support and seating system is established, the end user can concentrate on learning and sustaining the patterns of movement
The munevo DRIVE smart glasses are lightweight with an unobtrusive design and can be worn all day and the end user will hardly notice them.
What distinguishes munevo DRIVE from other wheelchair controls?
With munevo DRIVE, you control your wheelchair using simple head movements. The smartglasses used for this purpose are intuitive to operate, comfortable and pleasant to wear
munevo DRIVE can also be used on unpaved ground without any problems and you can expand the basic munevo DRIVE system with add-ons to take and send photos or to control a robotic arm.
This smart head control is now available across Australia for demonstration.
Contact Linds Rehabilitation Equipment on: 1800 501 601 for your nearest dealer to arrange a trial.
munevo DRIVE A smart head control for your wheelchair. Nod once - and off you go. Control your power wheelchair by moving your head. The smart glasses translate your commands - and the wheelchair does whatever you want!
The CoMoveIT Smart is an easy to use head or head-foot steering system for a powered wheelchair, unique in the world. It autocalibrates right after a plug-and-drive install. The internal smart algorithm, assures that the wheelchair adapts to the user, avoiding high tension and stress.
Contact us 1800 501 601
sales@lindsrehab.com.au www.lindsrehab.com.au
Tech for people with profound disability
By Ralph Johnstone in collaboration with the Telstra Sustainability team.
Australia delivers a revolution for people with profound disabilities – in the blink of an eye.
Dr Jordan Nguyen is the kind of person who never uses the word “impossible”, who believes that with the right support anyone can achieve their full potential. You may have limited physical control of your arms or legs, or challenges speaking words, but if you have the right people and technology on your side, you can communicate clearly, control your surroundings, study, start a business
– do virtually anything – just by moving your eyes.
Twenty years ago, when Nguyen started talking about a mind-controlled wheelchair, many people wrote him off as a crank or a dreamer. But the dream was only just beginning. After completing a PhD at UTS, and flooring the naysayers
with a computer system that drove a wheelchair with electrical brain signals, he began assembling a team of engineers to realise the impossible.
In 2014, his new company Psykinetic had its eureka moment with the realisation that, for most people with severe or profound disabilities, the eyes offer a simpler way to interface with computers than the ‘brainwaves’ of electroencephalography (EEG). “We saw this repeatedly, with people with stroke, cerebral palsy, Parkinson’s, and motor neurone disease,” Nguyen said, “that the eyes offer a more practical way to control a computer, which is relatively simple to set up, and can work in conjunction with other sensors and switches that people may already use”.
Today, this realisation is at the heart of one of the most exciting innovations to come out of Australia – or the world –for people with profound disabilities. As well as providing a cohesive platform for eye-tracking and other inclusive apps, it also presents a unique opportunity for creative coders and software engineers to break into the accessibility market.
Beauty and brains
In early 2025, Psykinetic will unveil a commercial prototype of AURA, a stylish, super-tough laptop and eye-tracker mount that can turn a wheelchair into a fullyfledged digital studio. AURA is designed to be paired with a vibrant touchscreen, a powerful computer, and seamless compatibility with eyetrackers, brain-computer interfaces,
Jordan Nguyen with the StarGaze home screen.
Jordan Nguyen, Jess Irwin, and Nick Temple in the Psykinetic lab ❱
push or muscle switches, or any other sensors you may use.
But the real beauty of AURA lies in its brains – a software hub called StarGaze, which will carry dozens of eye-tracking apps connecting users to web browsers, word processing, text-to-speech, a multitude of games, coding, AI, design and CAD modelling – basically, any software you might need for doing a job.
“This platform is so much more than playing games and communicating; it’s having a job, growing your skills, being able to contribute to society in the way that works best for you,” he said. “Thanks to the Telstra Foundation, AURA will aim to open up a world of new digital opportunities for our friends and communities who we’ve been designing with and for.”
Affordable solutions
Psykinetic’s technology addresses some key priorities of the Telstra Foundation, which aims to improve digital skills, and access and connectivity among young Australians, particularly for those groups who often miss out. That AURA and StarGaze are promoting affordable solutions in an area renowned for expensive hardware costs is another major advantage.
“I’ve seen friends with profound disabilities have to get their carers to bring in a new device when they shift from writing to playing games,” Nguyen said, “but that’s only if they can access them, because many of these devices cost in the vicinity of $20,000 or more”.
With Telstra Foundation’s grant, Psykinetic has been fine-tuning the AURA prototype with the award-winning design studio, Design+Industry, which is helping them strip back their electronics costs and design a version more suited to manufacturing at scale. The Psykinetic team are also building out the backend of StarGaze, and trialling their software with people with various disabilities, accessibility tools, and interests.
“Whether gaming is your thing, making digital art or music, or you want to connect and communicate, the team
has worked closely with people with lived experience to bring multiple digital experiences together,” Telstra Foundation’s CEO, Jackie Coates said. “They’ve really lifted the bar to create a beautiful, personalised, and very cool inclusive tech product. “This technology is a gamechanger and we’re so proud to be part of the journey to get it to market.”
Rockstar engineers
AURA and StarGaze are the culmination of almost a decade of tireless R&D by Nguyen and two long-term collaborators, Psykinetic’s CTO Nick Temple and DevOps engineer Jess Irwin, a young designer whose personal journey in many ways mirrors the evolution of Psykinetic.
Like Nguyen, Irwin has emerged as a rockstar – figuratively and literally – of Australia’s disability community. She emerged on the public stage in 2016, using an eye-tracking pie chart of musical chords and sequences to accompany the Australian Piano Quartet in a concert at the Sydney Opera House. That tech went on to become Atmosphere, one of Psykinetic’s first homegrown apps.
Irwin lives with severe cerebral palsy and has converted her challenging life into a world of inspiration, moving from a career in photography and graphic design, to field-testing StarGaze’s apps, and now, integrating them with AURA. In the process, she’s progressed from “painfully slow” hand-typing, to communicating at more than three times the speed through Psykinetic’s Frontier eye-typing software.
“I’m learning to use 3D modelling software via eye-control, which will let me customise joysticks and other aids that I will be able to 3D print to my own designs,” she said. “With AURA, there will be so many possibilities. I can see a brand-new world opening up for so many people.”
Coding the future
As well as developing their own apps, like Frontier, Atmosphere, and ‘Tabletop Tools’ for playing traditional games, the Psykinetic team plan to
offer their foundational code or APIs to solo developers and game studios that want to make their products compatible with StarGaze.
“Most inclusive apps have proprietary launchers, installation processes, or dedicated hardware, and writing code specific to each vendor can be a huge barrier for developers who want to make an inclusive app,” according to Nick Temple. “For apps on specific platforms, we’ve built features that can make an existing non-inclusive app instantly inclusive by drag-dropping modules into their projects.
“Making StarGaze a thriving platform for people with disabilities will only be possible by teaming up with the amazing companies already producing software and technology in this space, while making it as simple as possible for developers to take that extra step to make their apps more inclusive.”
For Nguyen, this capacity to help young developers and people with a genuine commitment to building accessible products is the icing on an already bountiful cake.
“A lot of young developers out there have been inspired by a friend or a family member with a disability to develop an app, and we want to help these motivated individuals gain access to the community, and we can’t wait to see more of our people building more of their own desired apps. These tools will make that easier too,” he said.
“We were never going to just add another competitor to a largely disjointed market, but instead, to help people who are already giving it a go to scale their innovations for people who might use them. That’s the dream, to build a network linking inclusive design studios and progressive developers around the world and help them connect with users and build collaboration across what has previously been a fragmented market of products.”
More information on Psykinetic’s inclusive tech: https://www.psykinetic. com/products; and on Telstra Foundation: https://www.telstra.com. au/aboutus/telstra-foundation
New financial year changes
Link summarise some of the major changes that people with disability, their family members and carers should be aware of.
1. Disability Support Pension: The Disability Support Pension did not change on July 1 2024. The pension is updated twice a year, on March 20 and September 20, so the next update is not due for a couple more months year. https://www.servicesaustralia.gov. au/payment-rates-for-disabilitysupport-pension
2. NDIS: The NDIA has released its Annual Pricing Review. This review means there have been changes to NDIS pricing, which came into effect on July 1, 2024. According to the scheme, these changes include:
• Fully implementing the Fair Work Commission’s increase to minimum wages in awards and superannuation.
• Increasing price limits for psychologists, nurses and other supports based on increases to wages and cost of living.
• Increasing price limits for supports that are determined by the NDIS
Disability Support Worker Cost Model. https://www.ndis.gov.au/ news/10196-ndia-releases-annualpricing-review-ahead-furtherpricing-reforms.
Government changes to the NDIS Act in the wake of last year’s NDIS Review are - as this issue went to press - making their way through Parliament. Read more about the Getting the NDIS Back on Track Bill at https://www.dss.gov.au/ disability-and-carers-programsservices-ndis-reforms/changes-tothe-ndis-act.
3. Payments: With the rollover into the new financial year, there have been updates to certain government payments. This includes the Carer Supplement. According to Services Australia, if you are an eligible carer for a period that includes July 1, 2024, your Carer Supplement will be paid for each eligible person in your care between July 3, 2024 and August 2, 2024. Visit https:// www.servicesaustralia.gov. au/annual-carer-supplementpayments-for-carers-start-3july-2024 for more information.
4. The Child Disability Assistance Payment for carers will also begin to flow through from July 3, 2024. Visit https://www.servicesaustralia. gov.au/annual-child-disabilityassistance-payments-for-carersstart-3-july-2024
Additionally, from July 1, 2024 the nil rate payment period has increased from six to 12 fortnights in a row. This applies to those who receive the Disability Support Pension. https:// www.servicesaustralia.gov.au/nilrate-payment-period-changes-from1-july-2024.
Design Guide for people with disability
Paralympics Australia has released The Universal Design Guide for creating Inclusive Sport in Australia, aimed at promoting accessibility, inclusivity and equal opportunities within sport and recreation. The guide is reference for sports’ representative bodies adopting inclusive practices, as well as sport clubs and venues that want to get started on the journey.
Paralympics Australia mentoring program manager Sarah Stewart said the project was based on feedback from Para-athletes at all stages of their journey and those that work in the sporting sector. “It is designed to be useful if you need some quick information in one or two areas through to thinking more broadly
about universal design in all aspects of our work,” Stewart said. The guide addresses the ‘who, what, when, where, why and how’ of inclusivity in sport.
It helps people be more confident communicators by using the right language and provides practical guides and tools for holding meetings, developing strategies and plans, and communicating with others.
“We ask everyone to flick through it, use it, jump in and out of it, share it –and provide us your feedback on what works well, what could be improved and what else would be useful to you in the future,” she said. “Start by regularly asking yourself and your team/club/workmates, ‘how might we be more inclusive?’”
The guide addresses structural, process and attitudinal barriers to inclusivity and universal design and comprises:
• Definitions of accessibility, inclusivity and universal design
• How to adopt an inclusive mindset and language
• Motivating case studies
• Focus activities for universal design
• Practical guides for: hosting a universal design kick-off meeting, developing inclusive strategy, producing accessible documentation and designing accessible inclusive digital experiences.
A facilities guide is also underway and expected to be ready for publication later this year.
Photo credit: Mathieu Stern
A guide to NDIS plan management
Managing your NDIS plan can be complex and time-consuming. Understanding your options can help you find the best way to manage your plan budget.
There are three ways of managing your NDIS plan: plan managed, selfmanaged and agency managed. Many people use a combination of these approaches to suit their needs.
Plan management involves having a third-party provider, like nib Thrive, manage your NDIS funds on your behalf. This is the most popular option, with 56 per cent of total payments to providers being managed by a plan manager.
Plan managers take care of payments, track expenses, communicate with providers, and budget for supports.
In the March 2024 quarter, 11 per cent of payments were self-managed*. This option gives you direct control
over your funds, where you handle payments and paperwork yourself.
For both plan managed and selfmanaged options, you can use registered and unregistered providers.
NDIA managed is where the NDIA manages your funds directly: 33 per cent of payments are agency managed, and you can only use registered NDIS providers.
Plan managers handle the financial paperwork of NDIS plans, including paying providers and providing spending reports. They can also help you learn to self-manage your plan, increasing your financial independence.
Anyone with a NDIS plan can use plan management services. This service is funded separately and won't reduce your support funding.
After adding plan management to your NDIS plan, choose a plan manager
More than just plan management.
Call 1800 999 333 or visit nibthrive.com.au to find out more
that fits your needs. Consider their experience, reputation, and support level. Your plan manager will set up your plan and provide a service agreement.
If you're not satisfied with your current NDIS plan management, it might be time for a change. A good plan manager can simplify NDIS administration, giving you peace of mind and more time to focus on your goals.
Managing your NDIS budget effectively is crucial for achieving your goals. nib Thrive offers efficient and reliable NDIS management, using innovative solutions to make tracking expenses, managing your budget and planning supports easy and transparent.
To learn more about nib Thrive, contact our team at: 1800 999 333 or email enquiries@nibthrive.com.au.
*NDIS Quarterly Report to Disability Ministers Q3 2024, on March 31, 2023-24.
The Chooze Shop - simplifying NDIS Shopping for Plan Managers
Are you a NDIS participant with a plan manager? Learn how The Chooze Shop is making online shopping more accessible for you. We make it easy to buy assistive technology and personal care items, so you can focus on reaching your goals.
Easy invoicing to plan managers. Keeping track of invoices can be a hassle. At Chooze, we make it simple. When you shop with us, we send invoices straight to your plan manager for approval. This saves you time and effort, so you don’t have to handle paperwork. You can relax. Everything is processed quickly and correctly, making your shopping stress-free.
One simple invoice. No matter how many different sellers you buy from on our platform, you’ll receive just one simple invoice. This makes it easier for you and your plan manager to manage your NDIS plan budget. Our system cuts down on paperwork. This way, you can enjoy more free time instead of dealing with multiple invoices.
Helpful product comparison tool. Choosing the right products can be tricky. That’s why we offer a helpful comparison tool.
You can compare products sideby-side, looking at details like specifications, prices, and benefits. Whether you need mobility aids,
personal care items, or other assistive technologies, we have you covered. Our tool helps you find the best choices for your needs and budget.
Safe and compliant products. We care about your safety and making sure our sellers' products meet quality standards. Each product on our site has risk ratings and NDIS support item numbers.
This means all products meet the right standards and can be easily claimed under your NDIS plan. These details help you pick the right assistive technology for you.
Shareable wish lists and carts. Planning your purchases has never been easier. With The Chooze Shop’s shareable wish lists and carts, you can make your shopping list and share it with your plan manager, carers or family. This helps everyone involved in your care stay on the same page.
Why choose The Chooze Shop?
Wide range of products. Chooze offers many products to meet your needs. We have assistive technology, personal care items, household aids and mobility equipment. You can find everything you need to support your independence and daily living in one place.
Easy-to-use website. Our website is designed to be accessible and easy to use. You can browse easily, compare products, and find invoices for all your past purchases. We want to make shopping simple and smooth for everyone.
Join the Chooze community today. Discover how easy NDIS shopping can be with Chooze.
Visit www.chooze.com.au to check out our products, use our helpful tools, and make shopping simple. Enjoy more choice, more control, simply more.
Exploring innovation at the ATSA Independent Living Expos
In May, the ATSA Independent Living Expos in Sydney and Brisbane attracted attendees from across Australia and New Zealand, keen to check out the latest in assistive technology.
These industry-focused events spanned two days of product demonstrations, discussions and presentations, drawing thousands of therapists, end users, families and carers interested in the newest innovations.
The expo's seminar program featured leading experts discussing a range of topics from wheelchair comfort and car seat safety to navigating the NDIS. Attendees appreciated the sessions for the valuable knowledge and fresh ideas they provided, with early morning 'hands-on' workshops adding to the learning experience.
A standout feature was the accessible fashion show, which will also be part of the 2025 programs in Perth and Melbourne. In Brisbane, the Sports Zone offered exciting opportunities to try accessible sports such as wheelchair hockey and pickleball, this addition to the show will also be back in 2025.
Serena Ovens, ATSA CEO, said, "the ATSA expos in Sydney and Brisbane were an unmitigated success. We saw fabulous attendance, amazing displays of innovative technologies and a seminar program packed with learning opportunities. It was wonderful to see many first-time exhibitors and the camaraderie our sector brings to these events”.
NSW Minister for Disability Inclusion Kate Washington at the Sydney Expo
NSW Shadow Minister for Disability Inclusion Natasha MacLaren-Jones with ATSA CEO Serena Ovens at the Sydney Expo
Cricketer regains his independence
Visitors to the Sydney Expo had the chance to meet New Zealand cricketer Chris Cairns, who played one-day and Twenty20 cricket matches during his 17-year career. He spoke to Link about his journey from wheelchair to walking.
In 2021 Chris Cairns had a spinal stroke during an operation, that unlike a traditional brain stroke that affects from left to right, occurs below the waist, leaving him paralysed. He was in a sling for three months before going into rehab but unable to walk without crutches or using a wheelchair.
Six months ago Cairns had a C-Brace, a computer-controlled leg brace, attached onto his left leg that has allowed him to walk again.
The device enables those with leg paralysis to walk safely even on uneven surfaces as the sensors in the orthosis system respond to his everyday movements. He needed KAFO (knee, ankle, foot orthosis) to provide stability effectively to his left knee joint as his left leg is much weaker than his right leg.
“What makes the C-Brace unique is I can have it on all day, within reason, in the kitchen, the bathroom or getting on a flight, but I cannot walk without it.”
It won’t allow him to hyperextend, so when he moves forward it compresses to avoid falling. It also assists with strengthening his leg and buttock muscles, to compensate for muscle loss, ultimately giving him full mobility.
“The device has been a game changer for me.”
There are challenges for people with disability but for Cairns his approach is to remain positive, regardless of what state his body is in. “A saying that I abide by is it’s not what you endure but how you endure. Some people will focus on what they are going through, my focus is how I do things to make sure I deal with it in a positive way.”
The C-Brace is available from orthopaedic technology group Ottobock.
An alphabet book with a giveaway
She is a three-time Paralympic swimmer and medal-winner and mother of two young children.
Public speaker, writer and spokesperson on disability, diversity, women’s issue and inclusion and a regular guest on the ABC who recently appeared on Play School, singing with Jemima and Humpty.
Meet Sarah Rose, now debut author with ABC Disability, a children’s book featuring all the letters of the alphabet with a difference “because we are all different”.
The book takes readers from A to Z of different abilities that takes you to understanding the world of disability, from down syndrome, dwarfism, and cerebral palsy that are illustrated throughout the book, with the Auslan sign for each letter of the alphabet.
“It is an educational starter for kids to learn about disability and the start of their journey,’’ Rose said, describing writing the book “as an exciting process”.
“I want my daughter Willow and son Freddie to grow up in a world where people with a disability, like their mother, are seen in the media and are part of the broader conversation around Australian life.”
The book, which is suitable for children aged 5+, is available now from bookstores and newsagents for $24.95.
And Link has six copies to give away to our readers.
To enter, send your email and contact details by September 2, 2024, to: kymberly@intermedia.com.au and go into the draw to win this fun-filled guide to disability.
Chris Cairns
ATSA Expos 2024 – an opportunity to learn
What the visitors told Link
Ability Action Australia OT, Eunice Muvindi from Mackay was a first-time ATSA visitor. “I am passionate about assistive technology, and I’ve seen how it has a positive impact on people’s lives, so that’s why I came here.” Muvindi said she enjoyed learning about the latest evidence-based practice and visiting the seminars, as well as finding new providers who can travel or do outreach to the regions.
Another attendee who enjoyed the insights on offer was NeuroABLE neuro physiotherapist Helena Axelsson who drove to ATSA Brisbane from Coffs Harbour. “I love seeing the
new innovations, and enjoy doing the educational things,” she said. “Being able to chat with like-minded people here around solutions and ideas, talk about difficult cases because more heads are better when we are coming up with solutions. I feel really invigorated about it because it’s so exciting and am already planning out months of work!”
Susie Leaviss, an occupational therapist from Ipswich Therapy Centre, said ATSA was “very informative”. “It’s good to have all the suppliers here in one place, you always learn something new,” Leaviss, a veteran of two ATSA expos said.
Liesa Tighe, a physiotherapist from Icaria Health in Albury, was collecting information not just for herself but also for members of the multidisciplinary team back home, and said the expo was “really informative”. “You are meeting up with experts within the field, people who lead the way with innovations and technology, so you’re actually getting a snapshot of really up to date innovations within the disabilities equipment field,” she said.
“Absolutely enjoyed the Sydney show and it was exciting to see the new technology and very comforting and reassuring that when we all get older, and our needs change, there are
Brisbane Exhibition Hall
innovations we can rely on…the level of quality and extent of innovation at ATSA has been impressive. We had a big roll up to our session as people were keen to try and get engaged,”Caroma Age Lab Workshop, head of customer programs, Dr Adeline Chua.
Total Ability founder Paul Crake collected three awards at ATSA 2024 and when asked what they meant for the company said: “The awards are quite significant for us as a team at Total Ability. There has been a lot of work done over the years in the driving space that has been a collaborative effort with our staff. We have brought about change and this is a nice way to celebrate the
the Bath Pod, a moulded seat that provides complete postural support for safe bathing for uses ranging in age from just a few months right up to adolescence. Available in four sizes, it allows users to be positioned safely in the water without sliding out of the seat.
“There is nothing like it on the market,” Apex Mobility director Michael Gage said. “We imported samples from the UK following requests from dealers and it received great feedback from visitors to the stands.”
Stock will be available later this year.
Gage said the seminar sessions were popular too with those attending the presentations leading to enquiries at the stands to get more information about the products.
Another interesting element was the mixed groups of therapists visiting the expos. "We noticed this year that there were multidisciplinary groups exchanging ideas and networking with each other and exploring opportunities from different angles,” Gage said.
Apex Mobility hosted several representatives from international manufacturers including Motion Composites, Rifton, Schuchmann and Klaxon who enjoyed networking with dealers and therapists in Australia.
fact. The ATSA shows in Sydney and Brisbane were a great success for us, especially in Sydney where there was the opportunity for clients to go on the test track and drive the vehicles,” he said.
As for what is next? “Total Ability is focused on driving, and we’ve recently did three drive days around the country, hired a closed track facility and invited our local network of driving instructors and occupational therapists to trial our range of driving modifications. We will be rolling more of these events in the coming year.”
One of the new products on display at the Apex Mobility stand was
Verve OT consultant Sarah
Her seminar presentation, “NDIS Rules and Guidelines – an Ots Playbook to AT Prescription’ was the most pre-registered session.
Collison.
Brisbane Sports Zone
Apex Mobility
Sydney Expo
Guests gathered for pre-dinner drinks at the heritage listed Brisbane City Hall with its Art Deco and Neo-Classic style architecture, a perfect setting for the awards.
ATSA Brisbane Gala Dinner & ATSA Independent Living Awards
The highlight of the ATSA 2024 expos was the awards dinner at Brisbane City Hall, where winners were celebrated, including Paul Crake and the team at Total Ability, who took home three awards.
to Excellence
Commitment
Award, joint winner, Ali Akbarian – Mobility Engineering AT Product Consultant of the Year, Julie Taylor - ILS
ATSA CEO Serena Ovens
Christina Stephens Prosthetic Jeans, Innovative Product of the Year joint winner, Jessie Sadler.
Move Mobility – Dealer of the Year
Permobil, New Product of the Year joint winner for TiLite CR1
Magic Mobility, Innovative Product of the Year joint winner for XT4 Power Wheelchair
Dance group on stage at the Brisbane City Hall
Total Ability – Paul Crake Industry Person of the Year and Commitment to Excellence joint winner and Supplier/ Manufacturer of the Year, with Michelina Pelosi and Frankie Britt
Freedom Motors, Best New Product joint winner for Hyundai Staria Drive From Wheelchair. Robert Van Mullekom and Shauny Van Mullekom
Passion for fashion and function: adaptive clothing on the ATSA catwalk
Models sashayed down a makeshift catwalk, broad smiles on their faces. Some used wheelchairs, while some had prosthetic limbs, but every one of them looked confident, stylish and comfortable. The packed crowd whooped and cheered at every turn as applause echoed around.
This was no ordinary catwalk, this was the accessible fashion show at the Brisbane Assistive Technology Suppliers Australia (ATSA) Expo.
It showcased the talents and innovations of fashion designers from around Australia who are united in their mission to bring stylish, functional and accessible clothes to people with disability, helping them to look and feel good, no matter the occasion.
On maternity leave at the time, Sadler offered to design some clothes for her mother that would be easier for her to put on. Little was she to know it would be the start of a new business, Christina Stephens.
Christina Stephens specialises in adaptive clothing, from essentials to dressier pieces.
“I started with postinjury, post-surgical garments, and the more people I spoke to in the disability community or allied health sector the more I realised that there was a much bigger and fashion-forward need for people with disability,” she said.
Danielle Kutchel spoke to some of the designers to find out what it’s all about.
A fall, then a rise
In 2017, Jessie Sadler’s mother had a fall, smashing both elbows and shoulders. The usually health conscious, well-dressed woman was unable to dress herself without significant pain.
Her family assumed there would be garments on the market to accommodate her situation but were shocked to find that in fact, there wasn’t much around at all.
“It was all a bit gender neutral hospital gowns, one-size-fits-all and a bit potato sack-y,” Sadler said.
Demand has only increased over time particularly as global designers have stepped into the adaptive space too.
“With the release of the recent Paralympic uniforms [by] RM Williams, it’s put it out into the mainstream as something that people with disability deserve, just like everyone else. It’s not just a nice to have, it has become an expectation.”
A key focus for the Christina Stephens range has been to design clothing that can be worn on special occasions when people want to dress up, think sequins and sparkles.
“It’s time that people with disability have the benefits of fashion that everyone else has. It is important for people’s self-worth and feelings of inclusion and self-confidence,” Sadler said.
Christina Prosthetic Jeans, modelled by Bella Herrmann
Tara VSequinTop and Suzie QSequinPants
Customers have responded well to the range, which includes different fabrics and styles designed for wheelchair users, amputees, people with sensory issues and other disabilities. She said customers have told her they feel seen, comfortable, confident.
The company recently released several new products, including prosthetic jeans, which took home the Australian Innovative Product of the Year award at the Brisbane ATSA Expo. The jeans are made of a bespoke textile, similar to that found in motorcycle apparel and bulletproof vests and developed specifically with people with limb loss in mind.
The fabric is designed not to wear through on prosthetic limbs and has cooling properties as well. The pants have full length two-way zips on both side seams for easy access to prostheses, and the cut follows current fashion trends. Other new products include velvet and sequined pants for wheelchair users, and jeans that can be unzipped to become shorts in summer.
Sadler said the lived experience of people with disability is crucial to her designs.
“Rather than just me or a full-time in-house designer we have changed
our design model to reach out to fashionistas within the community to create collaborative collections so that we are inclusive of all disabilities, and not just the ones we're familiar with, and to also give people, with a creative streak, an opportunity to let their creativity shine,” she said.
The process of collaboration has recently been formalised so that collections will now be co-branded with people with disability. The first two cobranded collaborations will be released next March.
Shop Christina Stephens online at www.christinastephens.com.au and the clothing can be covered using NDIS budgets.
From push mitts to seamless trousers, and further
Also among the designers at the catwalk show was Narelle Coyte from Active Adaptive.
Active Adaptive’s pieces are designed for people who use wheelchairs. The items are predominantly custom made, Coyte said, in order to meet the needs of each individual user.
“That’s because of the way of disabilities, we’re not all the same, even without a disability, we’re not all the same.”
Coyte started the business working from home as a stay-at-home mum, but her focus on people with disability didn’t come until around four or five years into the business. Initially, with experience working in aged care she began sewing adaptive clothing for patients with high care needs. Realising that there were other gaps in the community that needed to be filled, she took her garments to ATSA.
She was asked whether she could sew push mitts for people in wheelchairs and decided to try her hand at it.
From there, Coyte said, she simply listened to people and learned from them what they needed. As a Christian, she said some of her ideas come from God, like her seamless trousers, which Coyte described as “a game changer”
when they were initially released over 10 years ago.
“I’m not a designer, I don’t have any qualifications in sewing. I was taught by my mum from the age of four with a hand needle and thread. I just had an interest in sewing all my life,” she said.
The product range continues to expand and is endorsed by occupational therapists: trousers with front flap openings and side openings, palm pockets, pencil grips, bath mitts, bibs, catheter bag covers and more. In the case of push mitts, Active Adaptive now offers 33 different designs.
The push mitts drove the development of the bespoke side of the business, each person requires a unique fit, and Active Adaptive strives for comfort as well as style and functionality.
She admitted she uses the word ‘individual’ more than the word ‘disability’ when referring to her range, because she looks to create pieces that adapt to the needs of the individual.
“I do have that philosophy within myself that I want to be inclusive of others. It’s part of who I am as much as it’s what I do,” Coyte said.
That bespoke service nature remains at the heart of the business. After all these years, she still loves getting to know her customers and spending time listening to their needs and finding a way to provide a solution. Active Adaptive remains open to ideas from customers about how to adapt clothing to be more functional and personal.
Asked how they react to her products, Coyte’s answer comes quickly.
“It’s a game changer. When they can save money, when they can get back out into the community, when they can do some things that they used to do… and experience life again… it just opens their world. There’s just such a broad spectrum of what we A[Active Adaptive] do and you cannot buy it off the shelf. It is a niche; it is a need.”
Shop Active Adaptive clothing at www.activeadaptive.com.au.
Jack O’Keefe from Wild West Wheelchairs
Active Adaptive push mitt
A new service approach for individuals with disability
ONCALL SACARE, a leading national provider of disability support services, has introduced the Peace of Mind Framework, a 5-stage process designed to shift the existing service provision experience for the disability community.
Over five stages, the framework is all about creating a sense of community, collaboration and belonging, finding out what motivates its clients and helping them achieve their goals, overcoming barriers, and exploring strengths through a personalised action plan.
tracking, and check-ins to ensure safety and efficacy.
Stage 5: Review and Learn
Evaluating outcomes and identifying opportunities for continued growth and development.
“The Peace of Mind Framework demonstrates our commitment to provide personalised, flexible and outcome focused support that enables our clients to thrive and pursue their goals with confidence,” CEO Chloe Kempe said.
The Five Stages are:
Stage 1: Connect and Discover
Understanding the background, story, purpose, needs, strengths, and goals of each client.
Stage 2: Plan and Create
Designing a unique care plan tailored to the individual, drawing upon clinical expertise and holistic approaches.
Stage 3: Advocate and Evolve
Implementing flexible and diverse solutions to address personal needs and promote growth.
Stage 4: Demonstrate and Measure Regular communication, progress
Meet James* and learn how he, and his family, reached peace of mind together with ONCALL SACARE.
1. Connect and Discover James’ story and goals James is a 25-year-old living with ASD, intellectual disability, epilepsy and bipolar disorder. He lives in his own supported accommodation, receiving 2 to 1, 24/7 care. His main goal was to increase physical fitness, with a focus on swimming and long walks. He enjoys routine and familiarity, and his goals were centred around community access and involvement in activities aligned with his interests.
2. Plan and Create
What did we do to support James?
We implemented a person-centred approach, considering James’ non-verbal communication style and specific needs. The team included a case manager, a PBS specialist, a lead support worker and other support workers, with an extended team of his mum, sister, and support coordinator.
3. Advocate and Evolve
How are we advocating to improve James’ quality of life? Previously, James’ behaviours of concern (BOC) were too much in public situations for his previous provider,
but by identifying his unique triggers, his support workers were able to introduce him to the public pool. We tried hydrotherapy but it wasn’t for him. Instead, he preferred to relax and have fun in the pool without the official assessment. Weekly swimming trips to the public pool led to significant improvements in James’ physical fitness and mental well-being.
4. Demonstrate and Measure
How do we make sure we are accountable?
We measured outcomes by observing the reduction in escalated BOC, improved physical health, and James’ engagement in activities. Regular swimming sessions and exposure to new environments were key indicators of success. Observing the reduction in escalated BOC, his improved physical health and engagement in activities, his development across his goals was clear. Rob, his support worker team leader, documented progress, shared updates, and highlighted both positive outcomes and manageable BOC. Information was also communicated with the family through Ellisa, his Positive Behaviour Support therapist.
5. Review and Learn
How are we helping James to continue to reach his goals?
The plan is to continue with these successful strategies, ensuring consistency with the team. Together, they will explore new activities and environments based on James’ interests, with the aim of making incremental improvements in his quality of life. We also aim to discover more of what makes James laugh!
For more information about the Peace of Mind Framework and ONCALL
SACARE’s disability support services, visit www.peaceofmindframework.com or contact us at referrals@sacare.com.au or call 1300 145 636
*Name has been changed
Accessible Telecoms: enhancing accessibility and independence at home
Assistive telecommunications can play a crucial role in creating inclusive and accessible homes for people with living with a disability or other consumers who need tailored assistance. Accessible Telecoms is a free, confidential and independent service that provides personalised information on assistive phones, accessories, apps and training.
Key Devices
We know the increasing range of assistive and accessible technology can be overwhelming. Our website allows you to search for devices that suit your needs, and our helpline staff are here to listen to the issues you are experiencing, providing individual support and advice that’s tailored to you and your lifestyle.
Home Phones with Enhanced Accessibility
• Uniphone TTY: Allows users to type messages that are voiced to the recipient by a relay operator.
• Big Buttons and Amplification: Large, easy-to-press buttons, adjustable volume and loud ringers.
Devices Compatible with Hearing Aids
• Hearing Aid Compatible Phones: Specifically designed to work with hearing aids, ensuring clear and interference-free communication.
• Neck Loops and Bluetooth Streamers: Connect hearing aids to phones and other devices to improve sound clarity.
Mounting Solutions
• Wheelchair Mounts: Customisable mounts for securing phones, tablets, and other devices.
• Home and Vehicle Mounts:
Accessible Telecoms is a FREE service that aims to close the information gap surrounding the accessibility features of telecommunications equipment available.
We are funded by the Commonwealth of Australia and are an initiative of the Australian Communications Consumer Action Network (ACCAN).
Accessible Telecoms is specifically designed to cater to individuals with disabilities, seniors, their families and caregivers, as well as service providers and advocates. Our services are free and available to anyone who would like assistance.
Solutions to place devices in convenient locations that provide better accessibility and control.
Adaptive Accessories
• Eye Gaze Technology: Support independence by allowing people with limited mobility to control devices using eye movements.
• Switch Buttons: Large, easy-topress buttons for controlling devices, helpful for people with motor impairments.
• Prosthetic Adaptors: Help people with prosthetics interact more with devices.
Accessibility Apps
• Voice-to-Text Apps: Convert speech to text, for people with speech impairments.
• Screen Zoom and Enhancement Apps: Enhance readability and usability of screens.
• Media Captioning Apps: Provide captions for videos to make making media content more accessible.
Connect with our team
Still not sure about the right device? Our team combines technical expertise with lived experience of disability. We know how to ask the right questions to narrow options, and we can connect you with resources and training options to help you upskill and get the most out of your devices.
Call, text or email us today!
Helpline: 1800 442 300 Text: 0438 454 413
Email: accessible.telecoms@accan.org.au Website: www.accessibletelecoms.org.au (Device Search and Livechat)
Accommodation is no obstacle with recreational therapy
Recreational therapy uses a strengths-based framework that combines the benefits of therapeutic approach with the enjoyment and social interaction of individual recreational and leisure choices. This article will explore the concept of recreational therapy and its benefits, particularly in context with an individual’s accommodation, home support and management plans, including behaviour support plans.
Recreational therapy aims to improve or maintain a person’s social, physical, emotional, cognitive, and spiritual functioning through activities such as sports, arts and crafts, dance, and other leisure activities. By engaging in these activities, individuals can work on their physical strength, emotional regulation, coordination, and flexibility, as well as their cognitive and social skills. Recreational therapists, similar to other health professionals, create customised treatment plans based on each individual’s specific needs and goals.
This service plays a crucial role in improving quality of life whilst empowering and supporting the individual with self-efficacy. Ongoing participation in recreational activities, can develop new skills, increase self-esteem, and boost confidence. Meaningful engagement in recreational activities actively builds social connections, peer support and relationships, reducing feelings of isolation and loneliness.
Home support and plan management are carefully considered components of providing effective recreational therapy programs. Whether a person lives alone, with others, or in shared support accommodation can have an impact on how a person engages in recreation and leisure. Common hurdles include a lack of access to leisure opportunities, shared resources and budgeting. These are all considered in the development of recreational therapy programs to ensure autonomy and independence is well supported. Individuals should participate in recreational activities
in their environment of choice with appropriate supports for positive outcome and interactions.
Expanding recreational management
Recreational therapists provide flexibility assisting individuals to access recreational activities in their own homes or communities. Programs can be designed for individuals to benefit from therapy outside of formal treatment settings, including ongoing enhancement or maintenance after transitioning back home. Accommodations can be made to support individuals to access recreation choices. This may include physical modifications to the environment, adaptive equipment, or additional support from trained staff members. These accommodations can help individuals overcome barriers and fully engage in therapeutic activities, maximising the benefits they receive from recreational therapy. Generally recreational therapy can be incorporated with plan and case management for individuals with specific goals in recreation and leisure.
is therapeutic and tailored to their specific circumstances and current skill set. Plan management can also include behaviour support plans. These plans are designed to help manage challenging behaviours that individuals impede on their ability to fully participate in recreational activities. By identifying triggers, implementing coping strategies, and providing support and guidance, behaviour support plans can help individuals overcome these obstacles and engage more fully in therapy. This may also include collaborating with or referring to other allied health professionals where appropriate for the best outcomes possible.
Plan management involves creating individualised plans that address each person's unique needs, goals, and preferences. This ensures that an individual’s recreation and leisure
Recreational therapy offers a wide range of benefits for individuals when considered with accommodation, home support and plan management, including behaviour support plans. By participating in tailored recreational activities to meet an individual’s needs and goals, improvements in their emotional and spiritual health, physical and mental well-being, social connections, and enhance their overall quality of life. Recreational therapy is a valuable and cost-effective treatment option that can make a positive impact on quality of life.
For more information visit: www.recreationaltherapy.au
Dion’s new digs
The beginning of an exciting new chapter has commenced for Minda client Dion, who recently moved into his new Mitchell Park-based Supported Independent Living (SIL) accommodation.
The home, which is located next to other SIL accommodations, provides Dion with an opportunity to build friendships with neighbours, as well as make the space feel like his own.
Dion said he felt a level of excitement when he received the key to his new home, allowing him to commence the first step of his new journey. “I am very excited to move into my new home and able to say hello
to the people next door,” he said.
Despite moving into a new suburb, Dion said he is familiar with the area and will still be able to do the activities that he enjoys, while open himself to new opportunities.
Dion is one of Minda’s many brilliant volunteers. He spent over 156 hours last year volunteering, with those hours spent being involved in the organisation’s mail run and coin collection. When he is not volunteering, he enjoys going to his favourite shops and improving his fitness by working out at the gym, with the support of his staff.
“Now that Dion is a bit older and
mature, we thought it would be the perfect time for him to move into his own house,” Dion’s mother, Janet, said. “Dion is very happy to see other clients get the opportunity to live in the other house like he did.”
Dion, along with his family, are excited to see what the future holds. “I can’t wait to settle in and make the home feel like mine, it is very exciting,” Dion said.
Minda’s Home & Living Support (SIL) can help you find the right house that’s suitable to your needs and preference, with housemates that have shared interests and with the support you require.
If you have any questions about Minda’s Home & Living Supports (SIL), or the application process, call 1800 164 632 or complete the contact form on the website.
For more information, visit mindainc.com.au
Accommodation and home support: realising the right to independent living
By Natalie Wade
The right to living independently and be included in the community for people with disability is enshrined in article 19 of the UN Convention on the Rights of Persons with Disabilities (UN CRPD).
This includes the persons’ right to choose where and with whom they live, on an equal basis with others. Article 19(b) of the UN CRPD is clear that people with disability have the right to access in-home, residential and other community supports to support living and inclusion in the community, and to prevent isolation or segregation from the community.
Recent findings from the Disability Royal Commission have been clear that isolation and segregation from the community is a driver of violence, abuse, neglect and exploitation of people with disability.
Eradicating isolation and segregation from systems and structures, including the National Disability Insurance Scheme (NDIS) is essential.
People with disability need to be supported to live where they choose, with whom they choose and to access the supports they need to do so.
In Australia, realising article 19 of the UN CRPD requires many systems, structures and attitudes to advance. First, we must acknowledge that people with disability have this right to choose where the live and to access supports to live there.
This acknowledgment must be reflected in public policy, avoiding
Funding boost for autism
The South Australian Government is delivering $250,000 to 17 South Australian organisations.
The new ‘Autism Works in the Community’ grants program builds on a range of initiatives being developed by the state’s Office for Autism.
Grant recipients include:
• Adelaide Oval: to construct a sensory space which will be ready in time for next year’s Gather Round
• Spectrum Writing: to produce and publish a printed anthology featuring autistic writers
• Beach Road Wines: to collaborate with Autism SA to expand their offerings of inclusive tourism experiences for neurodivergent communities
• KIK Innovation: to deliver the ‘SEE ME’ project, supporting autistic students to work in a peer learning environment with direct links to employers who can promote autism inclusion in their organisation or industry and pave the way for meaningful employment.
Ensuring Adelaide Oval is a welcoming place for all guests is a constant priority and the grant enables it to take the next important step in creating a permanent sensory space, CEO Nick Addison said.
“We know from our experience offering temporary spaces during recent major events such as Pink and the Matildas game that these facilities are well received by those with sensory
positions that group people together or force them to live with others they do not choose to access their supports. Second, we must actively dismantle existing approaches that isolate and segregate people with disability.
Of course, people must receive the supports they need but this should not limit their participation in the community or diminish their choices. Thirdly, we must build new approaches which centre article 19 and actively pursue ensuring that people with disability live independently and are included in the community.
These actions need to be taken by governments at all levels (not just the NDIS), private organisations that offer service to the community and the community themselves.
The actions of those key stakeholders must be led by people with disability to ensure that it is informed by those with lived experience and expertise. This change is needed immediately.
needs and the ability to make this a permanent part of the Adelaide Oval experience is something our team has been working hard to achieve,” he said.
According to Spectrum Writing founder and CEO Jason Fischer, the organisation guides autistic writers towards a creative profession and is now able to fund the publication and launch of participants’ first volume of work.
“Hyperfocus is a book that will weaponize their special interests and hyperfixation and promises to unleash their staggering imaginations upon the public,” he said.
“Not only will this book launch their careers as writers but hopefully give them and their families great pride and a sense of achievement.”
Enhance your home’s accessibility with modifications
At VIP Access, we believe that reducing environmental challenges can help individuals maintain their independence safely at home. The first step is assessing current and future needs, evaluating living spaces, and making necessary modifications. Consulting with an occupational therapist can provide valuable insight and ensure adequate support.
Our assessments typically start by evaluating a person’s ability to enter and exit their home safely. Ideally, a home should have a no-step entrance. If this isn't possible, adding handrails or custom ramps are invaluable.
The kitchen, often the heart of the home, can be made more navigable without extensive renovations. An open floor plan allows for easier movement, especially for those using wheelchairs
or walking aids. Adjusting counter heights, using the kitchen table as a workstation, or adding a portable kitchen island can also help. Lowering stoves and cabinets and using D-shaped handles can aid those with limited hand strength and mobility.
In the bathroom, a step-free, zerothreshold shower with reachable taps and grab rails is ideal. Grab rails should be installed by professionals and tailored to the client's needs. Slipresistant flooring and adequate lighting are also crucial for safety.
Outdoor accessibility should also be considered, including mail collection, rubbish storage, car parking, and enjoyment of outdoor spaces. Ensure paths to rubbish bins, recycling storage, letterboxes, and garden tools are accessible. Parking spaces should be close to the entry and accessible, with
electronically operated garage doors or gates. Private, sheltered outdoor areas and raised garden beds can enhance physical and mental health.
If you’re considering home modifications, contact us for a site consultation. We’ll discuss your needs, set priorities, and provide guidance on the best modifications for your specific needs.
Operating in Southeast Queensland, from the Gold Coast to Brisbane, call us at: 07 3807 4309 to start making your home safer and more accessible.
Yarn bombers descend on Parliament House Melbourne
This was a yarn of a different kind. Colourful yarn bombs were held high when a group of deafblind Australians, community, service and research organisations took to the steps of Melbourne’s Parliament House to raise awareness on key issues faced by the deafblind community. This included recognising deaf blindness as a unique disability that will encourage urgent action for deafblind children in schools.
Led by Able Australia, Vision Australia, UsherKids Australia, CHARGE Syndrome Australasia, and Deafblind Victoria, the event aimed to connect members of the deafblind community with policy makers through touch and craft.
“Yarn bombing has been used as an activism tool for over 20 years and engages our sense of touch, which is one of the few senses that someone who is deafblind can use,” Able
Australia, Centre of Excellence head, Dr Meredith Prain said. “This year’s theme for Deafblind Awareness Week is ‘connect to act’. We hope that our combined efforts will create a united voice for those who are deafblind, and lead to real change for those who have multi-sensory disabilities.”
MP and Parliamentary Secretary for Health Infrastructure Tim Richardson
Embracing diversity at DAL Expo
Adelaide is set to host an event that celebrates the richness of its community through the lens of inclusivity and support. Catalyst Foundation’s Disability, Ageing and Lifestyle Expo stands as a beacon of enabling and aiming to bridge gaps, foster connections, and enhance the quality of life for people living with disabilities and the ageing population.
On October 11-12, the Adelaide Showgrounds will transform into a hub of activity, knowledge, and inspiration. The expo, which has become a staple in the city of Adelaide’s annual calendar, brings together service providers, advocacy groups, and members of the community to showcase the latest innovations, services and supports available to keep the community informed and up to date.
One of the most compelling aspects of the expo is its dedication to inclusivity. With over 250 exhibitors, participants can explore a wide array of resources ranging from healthcare and assistive technologies to lifestyle and leisure activities tailored for people whether old or young or young at heart and of all abilities. Catalyst Foundation has curated this event to ensure that it meets the diverse needs of attendees, providing a platform for learning, networking, and discovering new opportunities.
Interactive zones around the venue along with informative seminars will be spread throughout the day, offering practical advice and insights on navigating the complexities of ageing and living with a disability. These sessions are designed to allow individuals and their families gain the knowledge to make informed decisions about their health and wellbeing.
The expo serves as a vital reminder of the importance of community support and advocacy. It highlights the collective responsibility we share in creating a society that values every individual, regardless of their age or ability.
The Catalyst Foundation’s Disability, Ageing and Lifestyle Expo is more than just an event; it is a movement towards a more inclusive future. Partnering with businesses in way of sponsorship and exhibiting allows Catalyst Foundation to celebrate and support the diversity that makes our community strong.
Phone (08)8168 8702 or email expo@catalystfoundation.com.au or visit our website www.dalexpo.com.au
Ability Fest back in Melbourne, launching in Brisbane
The accessible and inclusive Ability Fest music festival is back in Melbourne and making its debut in Brisbane, both in October. For the first time, Ability Fest will open to attendees aged 16 and over across both locations.
“Ability Fest has been an incredible journey, and I'm thrilled to see its success growing year by year and that it is expanding to Brisbane for the first time this year as well as Melbourne,” disability advocate Dylan Alcott told Link . And he is keen for the festival that he founded becoming a national event.
“We love the idea of taking it nationally, including Sydney. It's not just about bringing great music to more people it's about spreading awareness and celebrating disability inclusivity on a larger scale. Our whole country has vibrant communities everywhere and we want to take Ability Fest to as many people as possible.”
As for how important the festival is to him, he said: “It's not just an event it's a platform where we can change perceptions and create opportunities for people of all abilities to come together, enjoy music, and feel
included. It's about breaking down barriers and showing the world what people with disabilities can achieve when given the chance, but also that we deserve the choice to have fun and come to events like anybody else. So yeah, seeing it grow and potentially become a national event would be a dream come true,” he said.
Ability Fest will feature a lineup across two stages in both cities. On the main stage, attendees will be Australian bands Ocean Alley, drill and rap group ONEFOUR, King Stingray, as well as Australian pop sensation Cub Sport, acclaimed DJ and producer jamesjamesjames, rising star Kita Alexander, American folk-pop singer Brenn, Floodlights, Asha Jefferies, Middle Kids, Eliza Hull, Jordz, and triple j Unearthed artist winners. The second stage, named Mark’s Stage, will host a diverse array of renowned DJs, including Australian creators of 'Shooting Stars', Bag Raiders, along with Jordan Brando, Crybaby, Wax'o Paradiso, Boone, Moss, DAWS, NayNay, Mikalah Watego, Neesha Alexander, Dewbs, Kuzco, Cheq, and Xeimma.
“Ability Fest is all about bringing people together through music, a
celebration where everyone, regardless of ability, can have an extraordinary time,” Alcott said. “I’m particularly excited about the diverse and talented artists we have lined up this year, as their performances will undoubtedly bring a unique energy to Ability Fest, uniting our community and creating unforgettable moments.”
Queensland Minister for Tourism and Sport, Michael Healy said Ability Fest was a showcase of Queensland’s commitment to raising awareness of the importance of inclusive and accessible events in the lead-up to the Brisbane 2032 Olympic and Paralympic Games. “Ability Fest is a must-attend music event for everyone, with affordable tickets and a range of accessible features including elevated ramps, viewing platforms and pathways, dedicated quiet zones, guide dog accessibility, and Auslan translators on stage.”
The Melbourne festival will be held at Alexandra Gardens on October 19, and at Victoria Park Brisbane on October 26. There is flat rate $60 ticket price plus booking fee, with complimentary admission for carers.
Get tickets at: abilityfest.com.au
Bonus travel offer from Leisure Options
As winter settles in for a few months and the temperature drops it’s a great time to consider a break from the everyday. A respite stay is the perfect opportunity to give you and your support time to rest, relax or enjoy time away from your daily routine. It’s amazing how even a short break away can make the world of difference for you, your family and carers.
Leisure Options offers a myriad of flexible respite packages with options at their beachside holiday house or at suitable properties at a destination of your choice.
These packages are fully customisable based on your preferences and the ultimate goals of your respite stay. You may be looking to try new experiences, explore new destinations, develop new skills or simply take some time to unwind and relax.
As fully inclusive packages your accommodation, meals, chosen
activities and suitable supports are included in your respite price. Leisure Options are on hand to assist you with selecting a length of stay within your budget. For travellers with a NDIS package the travel team are available to help maximise use of your funding to contribute towards your respite stay within NDIS guidelines.
If a respite stay sounds like an enjoyable and beneficial option for you and you do have funding for short term accommodation (STA) within your NDIS plan, Leisure Options has a bonus offer
for stays at Driftwood, their Surf Coast respite property in Anglesea. Book a three-day respite including a Saturday and Sunday and you will receive two additional weekdays FREE. That’s five days for the price of three. Conditions apply and the travel team will guide you through the available options.
Let the Leisure Options team help you experience the benefits of respite firsthand.
Tel: 03 9646 0666 or 1300 363 713 or via mail@leisureoptions.com.au.
Great holidays and travel for people with disabilities
With more than 30 years’ experience in both the travel and disability industries, Leisure Options is Australia’s only national award-winning, accredited travel agent specialising in supported travel for the disability sector.
Focus on providing holidays that allow maximum choice, loads of fun, high staffing ratios, commitment to individual needs, and a supportive holiday environment
• Choice of either group or individualised touring
• Respite care offered in a stimulating and fun-filled environment
• Over 80 departures annually to local, national and international destinations
• Passionate, energetic, and professional tour leaders with extensive qualifications and a world of experience
• Registered service provider with the NDIS
For more information call
or visit our website
Disability or Different Ability?
By Jayne Keogh
“All the world's a stage, and all the men and women merely players. They have their exits and their entrances,” wrote the Bard over 500 years ago. In recent times changes in attitudes have made visiting the theatre to perform on stage more accessible than at any point in history. Whilst Elizabethan theatre may have had a role for the jester or ‘fool’ who really wasn’t stupid at all and Richard II, a man with scoliosis, theatre now has many options on both sides of the stage for people with a disability.
There is no theatre without actors and a script to create that magical experience where we sit in a dark room, suspend our reality, forget the trivialities of life and immerse ourselves in a story that unfolds before us. Real and Diverse (RAD) Theatre has gone from
street theatre to performing on stage at the Queensland Performing Arts Centre (QPAC), with a new show, Quavers about the powerful legacy of music. It will be performed in the Cremorne Theatre from October 24-26, showing how the arts can shine a light on a creative and diverse cast of disabled performers to deliver an uplifting and inspiring experience.
According to RAD director Clark Crystal, “The arts is a safe place for all to participate in and experience and the ensemble of actors of all abilities to respond to the opportunities to build their skills and confidence. The best part is watching the RAD artists show off on stage, celebrate and connect with
the audience. They connect through their emotions, and I think the audience feels that intensely,” he told Link
Clark has collaborated with the Queensland Conservatorium of Music for this production, with a new musical score written by Nicole Murphy and performed by the students live. “Nicole lectures in composition at the ‘Con’ and wrote the music for RAD’s production of Technicolour Rumble last year,” he said. “It’s important for the cast to work with professional composers, they learn so much from each other.
“We work with all capacities and people’s talent, and we want to highlight and celebrate that talent.
Harry Quinn
The aim is to give them the tools of theatre, a platform – a stage – to people who would not generally get a platform to perform on. QPAC has a fantastic team, technicians, front of house (FOH), producers, and they care about their work and give the best opportunity to the artists that come here. It’s a privilege to work with all the staff at QPAC, who are so committed to diversity.”
Meet front of house Harry Quinn
Also working at QPAC is a tall, dark haired young man in a theatrical black frockcoat uniform. He is on the other side of the show, a member of the FOH team. Harrison (Harry) Quinn, 21, works the same usher, cloakroom, lift and greeting rotations as the 130 other FOH staff, but he was born with Dystonia, a condition where, he puts as ‘something has gone wrong with the wiring in my brain,’ causing intermittent muscle spasms and shaking. At times he appears to have the symptoms of Parkinsons disease or stroke, and his speech is slow, but articulate and crisp. Dystonia affects 16 in every 100,000 people globally, there is no cure or drugs although doctors are trying deep brain stimulation. Quinn has undergone this process and is optimistic for the outcome.
When asked why he chose QPAC as his ‘uni job’, he said, “Well I couldn’t very well do bar work, could I?” And obliged with a few shakes. “I have always enjoyed all types of theatre and music and came here a lot with my family.
“People forget that you are a bit different, and that’s all I want.”
But Quinn is a glass half full person, from an extremely supportive and close family. He attended St Joseph’s College, ‘Terrace’ as a regular student, where the only concession to his disability was sitting his exams on a computer in extended time. He is currently in his final year of a double degree in Bachelor of Arts and Bachelor of Business at the University of Queensland, a big load for anyone working nights at QPAC. Harry is short listed in the recruitment process for a coveted position in the Commonwealth Government and his dream job would be in analytical policy development.
“QPAC is also extremely accessible for people with disabilities and special needs, it is part of their charter. There are the obvious things like accessibility for wheelchairs, bathrooms, lifts, parking, ramps, surtitles, Auslan, descriptive text and complimentary tickets for accompanying carers, and that is all a given. But as well, every long run show has relaxed performances for those with neurological disorders,” he said.
“The FOH staff here, and it starts from the top down, are genuinely
caring people who want to make everyone’s experience special, not just disabled or frail patrons.”
On how patrons react with his disability, “People are kind and patient and often ask about my disability and I briefly explain, not that there is a lot of time if I am showing them to their seat. But sometimes I wish they wouldn’t ask about it, I don’t want to be defined by my disability.
“Once you are in a work team, everyone knows about your disability and then you all just get on with the job. People forget that you are a bit different, and that’s all I want.”
Quinn has made some realistic concessions to his situation, for example he can never hold a driver’s licence and if public transport isn’t practical for any treatment or assistance groups, taxis are available. The NDIS also helped with some special equipment for his baking hobby. His signature chocolate and raspberry brownies which are occasionally gifted for his workmates, are baked in a modified kitchen with special knives, scales and other measuring equipment.
Despite the very positive picture that both sides of the curtain present, there has been a lot of debate in the entertainment world about ‘ableism’. In the movie Wonka able bodied actor Hugh Grant was shrunk digitally to play the dwarf Oompa Loompa, depriving actors with a disability a coveted role. But on the other hand, is using real dwarfs fetishising their disability? Some anti-ablism activists are pressing for ‘conscious casting’ or is this where we have left the world of entertainment and entered social engineering?
Quinn’s view is: “I am a great believer in diversity in theatre and wherever possible actors with a disability should be cast members. This will work towards normalising life for the 25 per cent of the population with a disability.”
Do not pass – Go Access Travel
There is a new solution for the tourism industry that simplifies accommodation or venue provider information for promoting their business to people with disability.
“The Go Access Travel website is an easy and cost-effective option for the industry to showcase their accessibility, so consumers can make a more informed decision about their tourism destination,” founder and director David Sinclair told Link
All the tourism provider needs to do is complete the Go Access Travel questionnaire that covers all aspects of their business, together with images, that is formatted into a PDF and placed on the organisations website for people to view.
“Often information provided by an accommodation or venue provider can be a challenge to navigate, is incomplete or missing critical information. Each person with a disability has their own unique set of key needs,” he said, “which can vary from widths of a
passageway, to bed height or easy access to a car park, that allows the traveller to make considered decisions if that place is suitable for their needs.”
According to Sinclair the website is not designed to say: “you need to meet these standards, but this is what we offer, and the person can decide if it suits them”.
The information sheet can also be printed out to give to potential patrons or used as a training tool for staff.
“The travel market is a billion-dollar industry and for just $100 the travel sector can access a simple tool that is a good opportunity for travel organisations,” he said.
Go Access Travel director, Professor Simon Darcy said many providers in the travel industry struggle to understand
the breadth of disability diversity within their own operations.
“We are providing a platform for businesses that has been designed to take the angst out of understanding what access information is required to accurately represent their business operations. People with disability want information that allows them to make an informed consumer choice” he said.
“A platform like this is long overdue in the disability space.”
“A platform like this is long overdue in the disability space. A lot of providers have good accessible accommodation, attractions and experiences but don’t know how to effectively document, promote and distribute that information and by taking up this option they can be confident that what is being collected and presented on their website is best practice.”
He said promoting to the disability sector requires collaboration from the government, private and not-for-profit sectors involved in tourism to best address the needs of people across all types as of disability. “Not just people in wheelchairs, but those using walking frames or on crutches, but the access requirements for those who are vision impaired/blind, hearing impaired or Deaf, those with cognitive or intellectual disability, neurodiverse, and those with other invisible disabilities.
“As a start-up business we are well advanced with a completed IT platform, onboarding of businesses and what we believe are our solutions to scaling across the country and internationally in the future,” he said.
For more details visit: www.goaccesstravel.com.au
Matilda’s goalkeeper talks about her hearing loss
Matilda goalkeeper Mackenzie Arnold, spoke about her hearing loss at a media event in Sydney, and how her brother, who also has hearing loss, was her biggest advocate in having her hearing checked. “My workmates also made me award of my hearing difficulties,” she said.
She said because hearing loss can be a bunch of different things is, “probably why it took me so long to recognise it”.
And a major turning point was during Covid when she struggled with wearing a mask.
“The social aspect and withdrawing from conversations too made me realise what an impact it was having on my life.”
But once she overcame these hurdles about getting her hearing checked, “it changed my life”.
Arnold also addressed a few misconceptions around hearing loss, namely that hearing aids are only for the elderly and how much the design of hearing aids has evolved.
“I get a lot of parents contacting me about their children with hearing issues which is amazing.”
What’s On Calendar
AUGUST
August 16-17: Perth Disability Connection Expo https://www.eventbrite.com.au/e/2024-perth-disabilityconnection-expo/
September 6-7: Canberra Disability Expo www.canberrradisabilityexpo.com.au
September 17-20: LGBTIQA+ Leadership Summit - Sydney https://www.theleadershipinstitute.com.au/lgbtiqa+leadership-summit/
Arnold has launched a series of children’s books, “which I hope will encourage a new generation of readers and footballers,” she told Link . The brightly illustrated books, draw on her life and career.
Arnold is one of the 18-player Australian squad set to play in the Olympics Games in Paris, where the Matildas will compete in Group B against Germany, Zambia, and the US.
A recent survey conducted by Audika found respondents ranked sight as their most important sense, with hearing coming in second. And the key reasons for neglecting their hearing was lack of understanding and stigma with the latter increasing significantly amongst the younger age group, although 41 per cent of senior respondents said there is negative stigma surrounding hearing aids.
Audika, which operates more than 300 clinics nationally, is encouraging all Australians over 26 to ‘Love Your Ears’ and take the five-minute online hearing check via: www.audika.com.au.
September 19: Disability Advocacy Conference - Melbourne https://daru.org.au/conferences/2024/
September 19-20: National Disability Summit - Melbourne https://nationaldisabilitysummit.com.au/
September 24-26: National Brain Injury Conference - Adelaide www.braininjuryaustralia.org.au
September 25-28 Rehacare 2024 International Trade Fair - Germany www.rehacare.com