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“I’ve seen her crawl Georgia’s first year was hard. But things have got- before out of a nger – ten easier. “Once we got almost every milestone past the first year, I was she’s ever hit was out of like – I don’t want any anger,” Minor said. “She is other person to have to feel so mean and has so much as awful as I did this first personality. She’s like a Sour Patch kid,” she said. year,” Minor said. “Georgia is very aware Now, “It’s almost strange how normal it is, the way that she can’t walk or crawl that makes Bistecordedoresstuff. frescoAnd machacado our lives are. It freaks me her angry. Some kids are out sometimes,” she said. paquete de cualquier tamaño “We used to go to therapies fine with lying on the floor all day. is not. three times a week." Bistec de res Georgia fresco machacado Though she’s still small, Georgia wants to do stuff." de cualquier tamaño Minor said one of GeorGeorgia is doing very wellpaquete for a 2-year-old with Tri- gia’s therapists said she doesn’t normally take kids somy 18. She can sit and stand that young, but she likes with help, and tries to Georgia’s personality. Combo“She Pack says, ‘Whatever I crawl. She loves playing with toys and watch- tell her to do, she does the U.S.D.A. opposite,’” Minor ing “Mickey Mou s e exactSelect said. Clubhouse." Minor says Georgia’s The Hot Dog Song is her favorite, and as it plays, progress is thanks to a lot of therapy. There is speech she’ll say “dog dog dog.” She’s learned to sign therapy, physical therapy, s ome word s , s uc h a s vision therapy, aquatic “milk” and her favorite – therapy. She goes to a cardiologist, an audiologist, a “all done." “She’ll be at therapy and nephrologist for her kidwhatever she is all done neys, a sleep doctor. She with, she taps. She’ll tap was recently released from gastrointestinal the therapist – I’mU.S.D.A. all done the selecto paleta doctor. When Minor found out with you,” Minor said. de res sin hueso And she can say six about an intensive physiU.S.D.A. selecto paleta that could help words: Dada, dog, duck, go, cal therapy de res sin hueso learn to crawl Georgia get and good. and walk, her insurance But not Mama. Not yet. Minor said Georgia has wouldn’t pay for it. The Facebook group Chatty “a lot of sass.” A nd she thin ks that Newnan Women raised strong will and attitude are the money so Georgia a big reason why Georgia could get the therapy. Children with Trisomy has accomplished so much.
33
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Three weeks after the birth of her daughter, Kimberly Minor was told that her infant had Trisomy 18. The woman at her pediatrician’s office told her – over to phone – to “Google it." What she found was something very scary. That her daughter was “incompatible with life.” Georgia Minor recently celebrated her second birthday. Minor takes advocacy very seriously. March, the third month, is the month for awareness of trisomy disorders, and March 18 is National Trisomy 18 Awareness Day. For a while, one of the first results on Google for Trisomy 18 was a story about Georgia i n T he Newnan Times-Herald, written when she was just a few months old. “That ’s what I want people so see when they google it,” Minor said. “That’s one of the reasons why we fight to make sure we get Georgia’s story out there,” she said. “If I had Googled it and I had seen a kid like Georgia, I would have probably had a hell of a lot more hope than I did in the beginning,” Minor said. “That is what should pop up versus scary stories."
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18 often have heart problems, and Georgia is no exception. She was born with three heart defects. But one has healed completely, Minor said, and another is “starting to close up on its own.” And that’s with no surgeries. Minor said she and and her husband, Patrick, have often had to fight for their daughter’s treatment. Because so many children w it h Trisomy 18 don’t live more than a few months – or weeks – babies are often sent home on “comfort care,” Minor said. “Parents will carry the baby to term and then not have any medical interven-
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have no clue what the Through joining groups future might for that kid. for parents with trisomy We don’t do something like conditions and advocatthat for somebody like my ing for the children with dad, who has cancer. When the condition, Minor has you get terminal cancer, met many other Trisomy they’re not going to just 18 parents. One mom took let you die. Nobody does her child home on hospice that,” Minor said. “I don’t and comfort care. She was understand why we Carne do that de told her molida daughter would cerdo with children." die within a few tamaño weeks. paquete de culaquier “Parents take their kids “The baby didn’t die. Carne cerdo molida home to die happily in de She’s still alive. They didn’t paquete de culaquier tamaño their arms,” she said. “I start therapies until she respect that everybody has was a year old,” Minor said. a choice to do what they “We lose the opportuwant. But I think a lot of nity to see what they're parents make that choice going to be because efforts because a medical profesaren’t exhausted, parents sional has convinced them that their kid is not going GEORGIA • 2
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2 Times-Herald Xtra
| Wednesday, March 27, 2019
Times-Herald Xtra
tra X calendar March 27 - 29
your guide for local upcoming events
27 NEWNAN
29 NEWNAN
Puppet Palooza: An Art Extravaganza Friday
March 29, 6 p.m., Free The Carnegie Library is hosting a puppet workshop featuring Newnan ArtRez’s current artist-in-residence, Lavinia Roberts. Elementary age artists will create a hand puppet using paper sculpture techniques. Roberts is an award-winning playwright, puppet designer, and educator. She has productions in over 50 states
State of the Community: Housing
29 NEWNAN
March 27, 11:30 a.m., $35- $50
Friday
The Newnan-Coweta Chamber of Commerce will present a moderated discussion and lunch at the Newnan Country Club on the state of housing in Coweta with a panel of industry experts weighing in on affordable housing, economic drivers, and a combined vision for those who work and live in Coweta. Dr. William “Joey” Smith, Chair of the University of West Georgia Department of Economics, will highlight local housing trends amidst regional growth and the
The Art Walk Event is a celebration of local art, and is hosted twice a year in Downtown Newnan. Visitors can expect to stroll through over 25 locations in and see the work of at least 40 artists, and a wide variety of art styles and mediums.
and internationally. Space is limited for this program, so registration is required. For questions or reservations, call the Carnegie Library at 770683-1347.
Spring Art Walk
Wednesday
March 29, 5 p.m.-9 p.m., Free
local employment climate. $35 for Chamber members; $50 general admission. For more information, call 770-253-2270, or visit www. newnancowetachamber.org .
GEORGIA
continued from page 1
aren’t given hope or the opp or t u n it y to s e e ,” Minor said. “I think it’s important that we try to get our stories out there. To see a 36-year-old with Trisomy 18 – that’s huge compared to the, ‘Oh, they have a few weeks to live,’” Minor said. In Georgia’s case, their
f irst feeding therapist disagreed with Minor’s decision to pump breast milk and feed it to Georgia in a bottle, instead of giving her a feeding tube. “She told me I was killing Georgia by feeding her a bottle and she wasn’t going to be any part of that,” Minor said. “We fired them. We went
against the advice to get a tube. Our pediatrician fought with us,” she said. Now Georgia is eating yogurt and guacamole. She still takes a bottle, but she’s starting to eat more solid food. Trisomy 18 can have many variations. It can be full, with a complete third 18th chromosome
in every cell, or mosaic, where the third chromosome is only in some cells. It can be partial, with the third chromosome being incomplete. In Georgia’s case, she has a pa rtia l trisomy and a partial monosomy, m e a n i n g t wo of t h e three chromosomes are incomplete.
1
The W. Reece Payton Co., Inc.
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Resident Council Meeting
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17 2:00 PM 19
Newnan Niche Volunteer
Appreciation Luncheon Alzheimer’s
Support Group Meeting
2:00 PM
Easter Party - Egg Hunt
3:00 PM
Music Therapy
19
24
2:00 PM
• GIFTS FOR ALL OCCASIONS
Celebrate the Resurrection!
April Events 2019
2
FRIDAY, MARCH 29 & SATURDAY, MARCH 30 | 10:00AM - 5:00PM EACH DAY
Now, M i nor volu nteers as the Southeast region coordinator for the Chromosome 18 Registry and Research Society and does volunteer social media and Trisomy Awareness Month w o r k f o r S O F T: t h e Support Organization for Trisomy 18, 13 and Related Disorders.
I am crucified with Christ: nevertheless I live; yet not I, but Christ liveth in me: and the life which I now live in the flesh I live by the faith of the Son of God, who loved me, and gave himself for me. I do not frustrate the grace of God: for if righteousness come by the law, then Christ is dead in vain. Galatians 2:20-21
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Wednesday, March 27, 2019 | Times-Herald Xtra 3
DISCOVER DOWNTOWN Join us at the
SPRING
ART WALK
FRIDAY, MARCH 29 5 – 9 PM
A Front Porch Bookstore in Downtown Newnan
Visit our Front Porch Friday, March 29 for the Spring Art Walk!
• Southern Classics and Soon-to-be • Fiction and Non-fiction Best Sellers • Young Adult and Children’s Books • Used and Bargain Books
POP-UP MARKET
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~ Near Courthouse Square ~
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Local Artist Gallery & Gift Shop • Teaching Classes, Ages 3 to Adult • Painting Parties Available Onsite and Offsite
Visit the SprUs for Walk Fing Art March riday, 29th!
30 South Court Square, Newnan, Ga
cornerartsgallery@gmail.com • 678-633-5705 facebook.com/cornerarts Mon. & Sat. 10:00 - 4:00 Tues., Thurs., 10-6; Fri. 12-6 • Sun. & Wed. Closed
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Come see new creations by The Boyd Family and see the show
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SPRING
DATE: Ap ril 19, 2019 TIME: 6:0 0-9:00pm COST: Fre e!
Kick-off the weekend and join us for Cocktail Hour!
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• Sample our own in-house catering and receive a complimentary beverage.
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MOTHER’S DAY TEA
Sun., May 12 , 2019
Call or visit our website for event registration at www.lilliangardens.com
11:30 am an 12:30 pm tim d e slots available
83 Greenville Street, Newnan, GA 30263 • Historic Venue in Downtown Newnan • 770.251.1206 • admin@lilliangardens.com
4 Times-Herald Xtra | Wednesday, March 27, 2019
Classifieds 770-253-1576 • times-herald.com
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37 Years
Sharpsburg, Ga.
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Senior Citizen Discount
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N’S O T N A CL
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RESIDENTIAL
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We build your dreams! We are a local, veteran owned & operated company that is licensed & fully insured. We specialize in exterior & interior carpentry needs of all shape & sizes; from trim & cabinetry to decks & fences.
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Advertise Your Auction in 100 plus papers for $350. Your 25-word classified ad reaches1 million plus readers. Call Bruce at Georgia Newspaper Service 770- 4546776. Ask about our new quarter page network ads!
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770-899-1173 *678-633-5267
Coweta Carpentry
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Your business could be here! Call today and ask about our Service Directory Special.
770-253-1576
stacie@newnan.com
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