Howick and Pakuranga
Oh rats! Page 6
A NAME YOU CAN TRUST! Thursday, August 17, 2017
Est. 1972 Vol 46, No 33
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To Russia with love Donna Agnew with partner Che Brown and baby Quinn. The last fundraiser is on this weekend to raise funds for Donna’s treatment in Europe.
By NICK KRAUSE
Splashpad coming A world of laughs P14
P9
D
onna Agnew is a counsellor. But she still must dig deep to rationalise just how it is she can cope with the autoimmune disease she has. “Being a trained counsellor does not mean that I am not experiencing all the normal emotions such as grief, anxiety, and fear, but I do have a high level of awareness of my own well being, and I know what I can do to take care of myself,” she told the Times. “Since I have been faced with this illness and feeling so unwell at the start of this year, I found myself thinking a lot about some of the young people I have worked with who have encountered huge challenges, and I have drawn on their strength and thought if they can get
through that at such a young age, then I can be brave and do this.” Born and raised in Howick, the 37-year-old has made the tough call to head to Russia for treatment to see a doctor of haematology who specialises in HSCT (Hematopoietic Stem Cell Transplantation) for Multiple Sclerosis (MS) and other autoimmune diseases. MS affects the brain, spinal cord and central nervous system. It causes the immune system to attack the myelin which wraps around nerve fibres to protect them. Without this outer shell, nerves become damaged which in turn prevents the brain from sending signals through the body correctly. A counsellor at Howick College, the biggest concern for Donna right now is that she will be gone for five weeks. “My biggest worry is leaving
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Quinn, he is just 10-months-old. I worry about how he will cope and feel when he realises his mummy is not there, the thought of that brings me to tears,” she told the Times. “I really believe in Dr Federenko (her specialist), and that HSCT can halt Multiple Sclerosis...if I didn’t truly believe in that I would not be going through all of this. “I have met many New Zealanders whose lives have been transformed after HSCT. I can’t understand how we can deny this treatment to New Zealanders. “I would like to be in a position where I have some options and input into decisions that affect my health.” Donna and a very tight network have raised tens of thousands of dollars to get her to Russia, and there is one final fundraiser this weekend. “I think I was really unlucky to get
Multiple Sclerosis, but I know that I am incredibly lucky to be a part of a community that has rallied around me and enabled me to get to Russia and receive this stem cell transplant,” says. “I am beyond humbled and grateful for all the amazing people who have helped me on this journey. “I am feeling hopeful and excited about my future, I can’t wait till October when I am back home with my family, and on the path to recovery.” Her sense of urgency for seeking treatment in Europe is that the disease is unpredictable. “It depends where lesions form as to the disability attached, hence I am getting to Russia as soon as possible before the disease progresses.” Want to help? See the fundraising concert details on p9.
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