St John's Hospice

Page 15


They gave us all they had to give, gifts both great and small, but most of all they gave us love, the greatest gift of all.

The staff at St John’s Hospice would like to offer their support to you at this difficult time. The loss of someone you love is never easy and although grief is a normal reaction, it can result in very difficult emotions and feelings, and is a very individual experience.

The Hospice Family Support Team with consent will contact you initially by letter in approximately 6 weeks. This will be to inform you of our bereavement support and other services available that may be of interest to you.

However, before then there are many decisions to make and things to organise. We have produced this booklet to try and help with these. It is in two sections, the first is around practical matters, and the second around your feelings and emotions. It includes the contact information of other organisations that may be able to support you as well, if you feel that is needed.

SECTION ONE

1. What happens immediately after your loved one has died?

In the hospice inpatient ward. We will ask you which funeral director you will be using and whether your loved one wanted to be buried or cremated. We will then be able to prepare the necessary documentation for you which includes the certificate of cause of death, and a cremation certificate, if required. This paperwork can usually be collected from the hospice the following working day; the staff will book an appointment with you when the certificate has been completed.

At home. Please contact either the District Nursing Service or our Hospice at Home service straight away to verify your loved one’s death (this is different to certifying the death). Please do not phone the ambulance service because if your loved one’s death is not verified they will have to involve other emergency services, which can be very stressful. Once your loved one’s death has been verified you can then contact the funeral director of your choice to take over their care.

2. The Role of the Medical Examiner Service

The Medical Examiner service is a national system for reviewing all deaths. The Medical Examiner is a senior doctor, who is independent and not involved in the patient’s care. With the assistance of the Medical Examiner Officers, they will review all deaths in order to establish a cause of death prior to the issuing of the Medical Certificate of Cause of Death (MCCD).

After your loved one has died, they will ring you. During this call the Medical Examiner Officer will give you the opportunity to discuss the care and treatment your loved one has received. This is a chance for you to ask questions you may have regarding any aspect of their care leading up to their death, and express any concerns you may have.

The service does endeavour to provide you with the MCCD as soon as possible, however sometimes this can take a little longer due to the availability of the doctor responsible and in some cases the Medical Examiner or treating doctor may need to speak to the coroner.

For deaths occurring in the Hospice

Once the MCCD is issued and sent to your local Register Office the Hospice will contact you and at this point you will be advised to make an appointment with the Registrars online or by phone. Please see page 2 onwards.

What to do next – for deaths occurring at home or a care home

When an expected death occurs at home or care home, the GP surgery that has been treating your loved one should be contacted, followed by a Funeral Director of your choice (they are available 24 hours a day every day of the year) and your faith leader (if required). It would be helpful to indicate whether arrangements are to be for cremation or burial.

The GP practice will contact you when a Medical Certificate of Cause of Death is ready and with your local Register Office. At this point you will be advised to make an appointment with the Registrars online or by phone.

3. Finding a funeral director.

It is best to choose a funeral director who is a member of one of the following:

• National Association of Funeral Directors: www.nafd.org.uk

• National Federation of Funeral Directors (which holds a directory of funeral directors online) at: www.funeraldirectorsregister.com

• The Society of Allied and Independent Funeral Directors: www.saif.org.uk

These organisations have codes of professional practice and must give you their prices when you contact them.

4. Registering the death.

The death must be registered within five days with the Registrar of Births, Marriages and Deaths for the area where the death occurred. This must be carried out by either a relative, someone who was present at the death, the person arranging the funeral, or an executor of the will.

Please ring first to make an appointment: Tel: 0300 123 6705

OR: you can book an appointment online:

• www.lancashire.gov.uk/births-marriages-and-deaths (for deaths in Lancashire)

• www.cumberland.gov.uk/births-deaths-marriages-andceremonies (for deaths in Cumberland)

• www.westmorlandandfurness.gov.uk/births-deathsmarriages-and-ceremonies (for deaths in Westmorland and Furness)

• www.northyorks.gov.uk/births-deaths-marriages (for deaths in Yorkshire)

If the death has not occurred in Lancashire, Cumbria or Yorkshire you can still register it at the local Registrar’s Office:

• Lancaster:

Georgian House, 4 Queen Street, Lancaster, LA1 1R

Tel: 0300 123 6705

Barrow in Furness

Kendal

Morecambe Town Hall

Settle

You will need the following with you:

• Certificate of Cause of Death

Tel: 0300 303 2472

Tel: 0300 373 3300

Tel: 01524 582000

Tel: 01609 780780

• If available, your loved one’s Birth Certificate, Marriage/Civil Partnership Certificate and their NHS Number/Medical Card.

You will be asked for the following details:

• Full name, home address, date & place of birth;

• Last occupation, date & place of death;

• Date of birth of surviving partner;

• Whether the person was receiving a State Pension.

If the deceased is a woman, you will also need:

• Her maiden name, her husband’s name & last occupation.

The Registrar will then give you:

1. A Death Certificate. This is a certified copy of the entry in the Deaths Register. You will need this as evidence for the Will and when sorting out any financial affairs. It is wise to purchase several copies as photocopies cannot be used for legal purposes. Each copy of the certificate will cost £11 so be aware of this when asking.

2. Certificate for Burial or Cremation. This is a green form which you must give to your funeral director to enable them to legally care for your loved one. This form is free of charge.

3. Certificate of Registration of Death (otherwise known as Form BD8). You will need this to send to the Department of Work & Pensions, free of charge.

4. The Registrar may also offer the “Tell us Once” service, which will inform a range of organisations about the death to save you doing so yourself. When you make an appointment to register the death at the local Registrar Office, the “Tell Us Once” service will be explained to you. If you choose to take part, the Registrar will set up your loved one’s details on a national database. A reference number will be given to you. Then, giving this reference number, you can use the “Tell Us Once” service in three ways:

Online: Go to the online “Tell Us Once” service online. Visit www.gov.uk/tellusonce

Telephone: Call the dedicated Department for Work and Pensions helpline on 0800 085 7308

In person: You can talk to an advisor at customer service centres in Lancaster and Morecambe. Call 01524 582000 or email customerservices@lancaster.gov.uk

5. Informing other companies.

You will need to contact various companies to let them know your loved one has died. Some of these may be contacted through the “Tell us Once” service, but some won’t. You may well need to supply a copy of the death certificate, which will need to be an original. The organisations might include your loved one’s:

• GP or any hospital clinics they attended

• Equipment suppliers if there is anything which was loaned out. The District Nurses will be able to arrange this for you, if they ordered the equipment

• Dentist

• Employer if they were still working, including any trade unions and voluntary work

• Local Authority for council tax, any social services, disabled parking permit

• Government agencies e.g. HM Revenue & Customs, Job Centre Plus or Department of Work & Pensions and the electoral services

• Utilities: gas, electricity, water, telephone, mobile phone, internet providers, TV licence

• Finance: credit cards, building societies, insurance

• Banking: most banks now have a team dedicated to help you through this time. You may find it helpful to have the information about your loved one to hand such as their full name, address, date and place of birth, date and place of death, their national insurance number and their NHS number.

• Car: insurance – if you are insured to drive in the person’s name, check with the insurer that you are still covered.

• DVLA regarding their driving licence and any road tax which may be paid back

• Passport office: to cancel the passport and return it if requested tel: 0300 222 0000 or click on www.gov.uk, and search for Passport Office

• Library, clubs and associations

To stop unwanted mail continuing, you can contact one of the following:

• The Bereavement Register, either by phone on 0800 082 1230 (there is also a 24 hour automated registration service available) or online at: www.thebereavementregister.org.uk Or email: help@thebereavementregister.org.uk

• Deceased Preference Service

Tel: 0800 068 4433 during office hours

Web: www.deceasedpreferenceservice.co.uk

• Mailing Preference Service

Web: www.mpsonline.org.uk

6. Organising the funeral: your options.

A funeral service can be held in any suitable venue, not just a church or crematorium. The service, or ceremony, does not need to be religious - it can include whatever you, and your loved one, wants.

Funeral Directors

There is no time limit to have the funeral by. This can be varied to suit your needs: however, it is usually around two to three weeks.

You may also be able to make arrangements through your funeral director, and they can help you plan this and let you know what your choices are. It is perfectly acceptable to contact the funeral directors before your loved one has died, or any time afterwards. They will also transport your loved one from the place of death to their own premises, and then to the funeral, burial or cremation, depending on what has been decided. The funeral director can provide a hearse for transport of your loved one, and arrange “disbursement” fees which are fees for cremation, burial, church, and any other funeral costs. You will also be able to view your loved one in their Chapel of Rest and choose what clothes they wear. Additional options from a funeral director may include embalming, help with invitations, order of service, flowers, and collecting funeral donations.

Some local councils run their own funeral services, for example for non-religious burials. The British Humanist Association can also help with non-religious funerals. Visit humanists.uk for more details.

You can also contact the Cemeteries and Crematorium Department of your local council if you would like to arrange the funeral yourself.

There is also a lot of information online about alternatives to traditional funerals, if you would prefer to explore this. More information on planning a funeral can be found at www.citizensadvice.org.uk or from the Natural Death Centre: www.naturaldeath.org.uk or telephone 01962 712690.

Further information on funerals.

Information about cemeteries around Lancaster

Tel: 01524 582635 or you can find the information on the council website at www.lancaster.gov.uk

Lancaster & Morecambe Crematorium

Tel: 01524 848394

South Lakeland Crematorium

Beetham Hall, Milnthrope, Cumbria, LA7 7BQ

Tel: 015395 65363

Lancaster City Council Bereavement Guide

Tel: 01524 582635 or visit www.lancaster.gov.uk and search for “bereavement guide”

What to do after a death – free booklet from Job Centre Plus or www.gov.uk/after-a-death

Other sources of information

General information about funerals and what to do with the ashes, and suggestions for readings etc, go to: www.funeralinspirations.co.uk www.goodfuneralguide.co.uk

www.funeralguide.co.uk (free online support for the bereaved)

Paying for the funeral.

Funerals can be costly, but funeral directors understand people’s different circumstances and will suggest affordable choices. For a “fair funeral” price go to www.quakersocialaction.org.uk and search the map. These are funeral directors who have signed a pledge to deliver the best possible price for funerals.

If you can’t afford a funeral:

The local council can arrange a public health funeral if:

• There isn’t enough money in the estate to pay for it.

• There are no relatives or friends available to arrange the funeral.

This is usually a burial. You can attend the funeral but the local authority will decide the time and date.

There is normally a short service, but extras such as flowers, cars or notices in the local newspaper are not included.

If you are in receipt of certain benefits, you can also apply for funeral payment from the government to help you pay for the funeral.

Applying for Funeral Payment.

Funeral Payment is a government scheme for people on a low income who are receiving certain benefits, to help them pay for a funeral.

It won’t cover the whole funeral bill. As such, depending on where you live, you might have to pay up to a third of the cost of a simple funeral.

If you get Funeral Payment, you’ll usually have to pay the government back from any money you get from the person’s estate, such as their savings.

If the person’s estate consisted only of personal belongings and a home that they shared with their surviving spouse or civil partner, the government normally won’t claim back this payment.

How do I claim?

You have three months from the date of the funeral to make a claim.

Visit www.gov.uk/funeral-payments for more information on eligibility and how to apply claim this benefit.

Bereavement benefits.

You may be entitled to certain bereavement benefits. These can be obtained through the form BD8 you will have been given by the registrar on the registration of death. You may be eligible for a contribution from the Social Fund towards the cost of a basic funeral. To find out more you can contact the Bereavement Service of the Department of Work and Pensions on 0800 731 0469 or visit www.gov.uk/bereavement-support-payment

7. Sorting out the will.

Ideally, there will have been a Will made and you will know where it is. Often a copy is left with a solicitor or bank, and you should contact them for it. There will be an ‘Executor’ to deal with the ‘estate’ (money, belongings, property). If the person did not name an executor, the court will appoint someone (usually someone named in the Will) to administer the Will.

If a person dies without making a Will, this is called ‘intestate’, and you or a solicitor will need to follow certain procedures. More information is available online at www.gov.uk/applying-for-probate Probate.

If you are an executor and entitled to deal with someone’s estate, you will have to apply for legal permission to do so from the Probate Registry (called probate). This may also involve sorting out any Inheritance Tax due: www.gov.uk/inheritance-tax

Contact: Probate & Inheritance Tax helpline

Tel: 0300 123 1072

www.gov.uk/applying-for-probate

You may choose to deal with probate yourself if the estate is relatively straightforward, or you can use a solicitor to help you. Should you find it helpful to take advice from a solicitor, you can usually have a short consultation after which you can then decide if you will need further help.

The whole process of going through probate will take several weeks. The probate office for the Lancaster area is in Liverpool (0151 236 8264) and for Cumbria is in Carlisle (01228 521 751).

To complete probate an interview is needed. These interviews are run regularly and once completed you will then be given a ‘Grant of Representation’ form to give to financial and other organisations, in order to release the estate.

8. Sorting out a person’s possessions.

This can be a difficult thing to do, and only you will know when the time is right. If it would be helpful, our hospice shops are happy to take good quality clothing, furniture and other items. Please phone our St Johns Hospice warehouse at Edenvale Crescent, Lancaster on 01524 64733 or visit www.sjhospice.org.uk/furniture-collection online to arrange furniture collection or to drop off any other donations. Donations can also be dropped off at any of our shops and at the hospice. See www.sjhospice.org.uk/ourshops for your nearest location.

9. Deleting social media.

If your loved one had social media pages, such as Facebook or Instagram, or even email bill reminders, you may need some help in finding out how to delete these. Unfortunately some electronic profiles cannot be deleted. However by contacting the relevant customer service departments online, you may be able to “memorialise” their profile instead. Talk with family members about which social media sites your loved one used, and contact the relevant help section online.

SECTION TWO

How are you feeling?

In bereavement, each one of us has suddenly embarked on a new, and often at times painful, journey. It is a journey we may have felt quite unprepared for, and one that may take us into uncharted territory for our thoughts, feelings and emotions.

At first, the shock of loss may have left us with feelings of disbelief: we simply can’t believe that this has happened, and happened to us. We may still expect the person we have lost to be there. We still long for them, look for them, and may on occasions feel we see them. This is natural, and whilst may be disconcerting at first, can be reassuring.

We may also, at times, feel numb, or have a sense of being on ‘automatic pilot’. And whilst our family and friends can interpret this as ‘coping well’, we ourselves may actually feel the opposite, or just not know quite how we feel. And then there are the physical feelings: we might be sleeping badly, feel exhausted, have aches and pains we hadn’t had before, or find it hard to concentrate.

All these are natural responses in bereavement, how our body and mind are designed to cope with this part of our life’s journey.

We can experience a whirlpool of intense, confusing and often contradictory emotions. We may sometimes experience:

• Feelings of intense grief

• Feelings of guilt… ‘if only’ … if only I had said this, if only I had done that differently

• Feelings of anxiety, of fear about the future

• Feelings of anger towards others, towards ourselves, even towards the person who has died

• Feelings of relief that the pain and suffering has ended.

Painful though such feelings can be, they are also part of the healing process. As time goes by, these intense feelings may subside, and we might come to a time of flatness, depression or loneliness.

We might also feel a loss of our own identity and purpose in life.

Grief is not an illness, though it can perhaps feel like one, and we need not be frightened by some of the feelings and emotions we may experience.

Gradually we can begin to realise that we have our own lives to live without the physical presence of the person we have lost. This realisation is not a betrayal, for we will never forget them, and they will always be a part of us, in our hearts and our memories, and in how they have shaped our lives.

Each of us will travel the journey of bereavement in our own way, and we may be surprised how long that journey takes.

Along this journey it may help to share your feelings with those who can help – a family member, a close friend; or it may help to talk to someone outside the family. We may wish to check if our experiences are similar to others, or discuss different ways of managing the coming weeks or particular events, or just simply release our feelings.

Suggestions that may help:

• Try sharing your feelings with those who can help

• Try to eat and rest well

• Try not to make major decisions (e.g. housing, finance, relationships) too soon, or be rushed into them.

In time, your own journey may again become more peaceful and serene, with hope renewed.

If you feel you need more support please visit your GP who can discuss suitable support options for you.

How can St John’s Hospice help?

We are here to continue to help you in many different ways. Our Family Support Team offers bereavement support to families linked to the palliative care services in the hospice, hospital and community.

Within the Family Support Team, our bereavement volunteers provide an opportunity to share and explore your thoughts and feelings in confidence. We can also provide practical information, or help put you in touch with other organisations that can give you additional extra help you may need if that is appropriate.

We host a “Tea and Support” session on the second Sunday of each month from 1-3pm in the Oak Centre, which is an informal time of company and support for those recently bereaved.

Complementary therapy sessions are also available to help you relax. For more information contact the Family Support Team at the Hospice on 01524 382538.

Time to Remember is a remembrance ceremony we regularly have at the hospice. If you have consented to contact, you will be invited to attend the ceremony during which, if you agree, the name of your loved one will be read out. You will also be given the opportunity to light a candle in their memory. This is a special time, as many people have never been to the hospice, or haven’t visited since their loved one died.

Light Up a Life: every Christmas we organise two of these events, one in Lancaster/Morecambe and one in Kendal. This is an opportunity to remember any loved ones who have died, not just those at the hospice. You will be invited to light a candle and to remember your loved one with us.

If you feel you would like bereavement support or advice from the hospice, please contact the Family Support Team at St John’s Hospice, Slyne Road, Lancaster LA2 6ST, Tel 01524 382538, Email: family.support@sjhospice.org.uk.

Some bereaved families like to continue to be involved with and support the hospice in different ways.

Below are some suggestions of ways to be involved with St John’s Hospice and make new memories. It’s your choice if you would like to be involved.

• Some people like to dedicate a leaf on our Tree of Thanks in the hospice in memory of their loved ones

• Some people like to volunteer at the hospice, although we do suggest waiting a short while before starting this

• Some people like to support our hospice events

• Some people like to do their own fundraising in memory of their loved ones.

If you want any more information on volunteering please call the hospice and ask for the volunteer department. For further information on the Tree of Thanks, supporting hospice events or running your own event please contact the Fundraising department. All can be contacted on 01524 382538.

Talking with children

As adults we often try to protect one another through illness and in bereavement. We often feel the need to protect children from what is happening for fear of upsetting them or that they may not understand. However, children do have huge resources and ability to cope with such times of crisis.

Children may in fact find it harder to cope if they are not told what is happening, because their fears may then run away with their imagination. Children do appreciate being told the facts, and in a simple and straightforward way appropriate for their age. Do try to use words such as ‘death’ and ‘dead’ rather than ‘lost’ or ‘asleep’. Encourage them to ask whatever questions they want, and give them time and plenty of reassurance.

Your children may find it helpful if you share your own thoughts and feelings with them, as it will help them to understand their own feelings and that it is OK to be sad and upset. Some children find it helpful to draw or paint pictures, or to write a poem, when someone dies, to express their feelings that way. Do also keep those at school aware of your situation.

Useful organisations and information.

General

AGE UK

Practical support, advice and information

One Stop Shop: 7-11 Chapel Street, Lancaster LA1 1NZ

Tel: 0300 303 12 34 www.ageuk.org.uk

Citizens Advice (CAB)

Advice on benefits, tax and money management

Tel: Lancaster 01524 400 404

Tel: Kendal 03444 111 444 www.northlancashirecab.org.uk

Carers UK

Advice and support for carers, including in bereavement

Tel: Advice Line 0808 808 7777 www.carersuk.org

Government website

Information about public services, including tax, benefits, probate www.gov.uk

MacMillan Cancer Support

Support and information for those in bereavement from cancer

Tel: 0808 808 0000 www.macmillan.org.uk

Samaritans

Confidential support for any person in despair or feeling suicidal, 24 hours a day support

Tel: 116 123

Email: jo@samaritans.org www.samaritans.org

Bereavement Support

Bereaved Parents Network

Help and support to those who have lost a child of any age

Tel: 0292 081 0800

www.careforthefamily.org.uk

Bereavement Advice Centre

Advice on any benefits, tax or probate issues

Tel: 0800 634 9494

www.bereavementadvice.org

CancerCare

A range of support for those bereaved by cancer including children and young people

Tel: 01524 381830 (Slynedales), 01539 735800 (Lakes Centre, Kendal) www.cancercare.org.uk

Child Bereavement Charity

Support on the death of a child, or when a child has been bereaved

Tel: 0800 028 8840

www.childbereavementuk.org

Child Death Helpline

Support for anyone affected by the death of a child

Tel: 0800 282 986

Tel: 0808 800 6019 (from a mobile) www.childdeathhelpline.org.uk

The Compassionate Friends

Help to parents whose children or grandchildren have died

Helpline 0345 123 2304 www.tcf.org.uk

Help to people whose brother or sister has died www.tcf.org.uk/content/ftb-siblings

Cruse Bereavement Care

Information, advice and support to all bereaved people

Helpline: 0808 808 1677 www.cruse.org.uk

London Friend LGBT Bereavement Helpline

Support and practical information to lesbian, gay, bisexual, transgender people who have been bereaved or facing bereavement

Helpline: 020 7833 1674 www.londonfriend.org.uk

Way Foundation

Helps the under 50s who have lost a partner www.widowedandyoung.org.uk

Support for young people

Cruse Bereavement Care for children and young people

Website support designed by young people for young people

Tel: 0808 808 1677 www.cruse.org.uk/children

Childhood Bereavement Network

Information, support and guidance for bereaved children and young people

www.childhoodbereavementnetwork.org.uk

Riprap

Support for young people age 12-18 whose parents have cancer www.riprap.org.uk

Winston’s Wish

For bereaved children, young people and their families

Helpline: 08088 020 021 www.winstonswish.org

Childline

Helpline 0800 1111

www.childline.org.uk

Funeralzone: free online support for the bereaved www.funeralzone.co.uk

GriefShare

Based in Carnforth, a caring group - of people who “walk alongside you”.

Ring Elspeth on 01524 702966 or visit: www.griefshare.org for more information.

Stopping Junk Mail to the recently deceased

If someone you know has died, the amount of unwanted marketing post being sent to them can be greatly reduced which helps to stop painful daily reminders.

By registering with the free service www.stopmail.co.uk the names and addresses of the deceased are removed from mailing lists, stopping most advertising mail within as little as six weeks. If you cannot access the internet you can call 0808 168 9607, where you will be asked for very simple information that will take only a few minutes to complete. Alternatively, ask the bereavement team for a leaflet that can be returned in the post.

This free of charge service provided by the Bereavement Support Network will not only actively reduce the unwanted marketing mail but also can help reduce the likelihood of identity theft following the death of someone close. The information is not used for any other purpose and you only have to complete this once. Additionally to Stop Mail a comparable service can also be accessed from the Bereavement Register or Deceased Preference Service if you would prefer to use them.

As an independent charity, our work relies on fundraising, donations and gifts in Wills. Your gift, regardless of value, will help our nurses and doctors continue providing outstanding care for patients in South Lakeland and North Lancashire who face a life shortening illness.

To find out more about leaving a gift for St John’s Hospice in your Will, please speak to your solicitor or contact Liz Edmondson, our Legacy Manager, for an informal discussion without any obligation.

Telephone: 01524 382 538

Email: liz.edmondson@sjhospice.org.uk

www.sjhospice.org.uk

Reference: St John’s Hospice Bereavement Booklet

Review Date: May 2026

Publication Date: May 2024

The Hospice would like to thank RNS Publications for publishing this information and the following pages contain some features from services o ering their help at this time.

Whilst the Hospice is grateful of their support it does not endorse or recommend any of the services that they provide.

STOPPING JUNK MAIL

It is distressing to deal with a bereavement and unsolicited mail can be insensitive and destructive during a grieving process.

By scanning the below QR code on your phone or visiting www.stopmail.co.uk, we are able to securely share this information with mailing organisations and under the Data Protection Act the information will not be used for any other purpose.

Other benefits reduce the possibility of identity fraud, such as assumed identity and you will only have to supply the information once.

When all you want is either a simple cremation or funeral

We understand how expensive funerals can be and we specialise in providing a valued service.

In recent years families have increasingly chosen more straightforward options. We can o er a simple and digni ed cremation from £1295.00, as well as more traditional funerals where we can add personal touches to re ect your wishes.

To discuss how we can bring your loved one into our care and con rm a xed

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