CRY Update Magazine - Issue 41 by Cardiac Risk in the Young

Inside Issue 41 County Rep Report Somerser County Representative Keri Montague Page 2

Chief Executive Report Alison Cox and CRY Page 2-5

Office Manager and Event Manager Kerry Gray and Tony Hill with the web and family screening Page 6

CRY Screening Manager Mat Wilson with news from the CRY Centre of Sports Cardiology Page 7

Bath Half Marathon Simon Halliday and his report on the Bath Half Marathon Page 8-11

Kids for CRY with Julie Julie Tanner interviews plus our kid fundraisers Page 12-16

Our Fundraisers CRY fundraisers with their stories and pictures Page 17-47

Raising Awareness News Paper articles involving CRY Page 48-67

Other CRY Publications Counselling, Annual Report, General Leaflet Page 68

Bulletin Board Page 69

Inside Issue 41

â&#x20AC;&#x153;Every week, 8 apparently fit and healthy young people die of an unknown heart defect. Every penny we make goes towards efforts to prevent this from happening.â&#x20AC;?

Meet our Representative: County Representative for Somerset Keri Montague

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Cardiac Risk in the Young

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Cardiac Risk in the Young

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Cardiac Risk in the Young

Kerry Gray and Tony Hill Reports

Report from Office Manager - Kerry Gray I have been very busy since the last issue, updating and refining parts of the CRY website. Spending so much time on the website has reminded me just how useful it is for staying up-to-date with things going on at CRY. News items on the CRY homepage – www.c-r-y.org.uk are regularly updated, and this is the best page to visit for any big new stories. These stories appear just below the ‘CRY in Parliament’ box on the homepage, with newer items appearing at the top of the list. Media coverage of CRY also continues to flourish. Due to the time it takes to get permission to reproduce newspaper articles, our news page – www.c-r-y.org.uk/what_is_the_media_saying.htm is generally a few weeks behind ‘current’ news. However, articles from national publications often appear on this page quite quickly, and the page is a great record of all the media coverage that CRY is getting. Two other useful pages for keeping informed, are the Upcoming Events page – www.c-r-y.org.uk/upcoming_events.htm - and the Event Write-ups page – www.c-r-y.org.uk/past_events.htm In the Event Write-ups section, you will now find a full account of former England rugby star Simon Halliday’s massive fundraising event for CRY at the Bath Half Marathon. This was a fantastic event, and you will find lots of great pictures on the website. www.c-r-y.org.uk/simon_halliday_bath_half_marathon.htm. Also in the Event Write-ups section, Mark Fox (CRY Publications Coordinator) has written a brilliant account of his fundraising trek in the Sahara Desert – www.c-r-y.org.uk/mark_fox_desert_trek.htm. Mark’s photos from his epic adventure are also well worth a look. Whilst in the vicinity of the Fundraising section of the CRY website, you may have noticed that I have changed the layout somewhat. There is now a Fundraising index page www.c-r-y.org.uk/fundraising.htm - from which you can navigate to various other Fundraising subsections (Upcoming Events, Event Write-ups, Merchandise, Sponsor Forms, etc). One of these subsections – Merchandise – has also had a major overhaul. CRY has recently commissioned several new items of merchandise, such as the CRY water bottle, CRY gym bag, CRY baseball cap and CRY rugby shirt. You can now see pictures of all our merchandise, literature and posters by going to www.c-r-y.org.uk/merchandise.htm. This will take you to a Merchandise index page, 6

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from which you can navigate to various subsections. Staying on the theme of Fundraising, I am pleased to report that there have been a number of people who have decided to support CRY through the ‘eBay for Charity’ scheme. You can find out all about this at www.c-r-y.org.uk/ebay_for_charity.htm. I can also tell you about another fundraising scheme using the Internet. You can raise money for CRY just by searching the web. CRY is now listed on www.everyclick.com a search engine that helps charities. When you want to search the Internet, please go to www.everyclick.com/uk/cardiacriskintheyoungcry rather than using a search engine. From here you can search the web and help CRY at the same time. Staying with quick-and-easy electronic donations, it is now possible to donate to CRY by text message. To donate £3 to Cardiac Risk in the Young, simply text CRY to 84858. Messages are charged at standard rate. You will receive two confirmation messages, charged at £1.50 each. CRY will receive your donation net of charges applied by mobile network operators and a processing fee. If you have any questions regarding this service, please call 020 7549 2222. You are welcome to ‘spread the word’ about this text donation service, although you must use the text above (everything from “To donate £3 to Cardiac Risk in the Young…” down to the phone number). Report from CRY Events Orgainiser - Tony Hill In February our team visited Redcar in Cleveland to join the Bowen Family for their 5th Mobile Family Screening. The event went very well reviewing 40 clients. Special thanks goes to our team of Dave & Adele Oxborough, Jan Forster and Dr Raj. GE Medical helped us out by loaning us their fantastic Vivid I ECHO System. (See photo) There has been a great deal of interest from our families for Mobile Screenings. The Lundy’s in Northern Ireland, The West Midlands ECG Programme in Birmingham, The Lowe’s in Lancashire, The Donnelly’s in Kent and Robert Crabb in North Devon. The CRY Conference team including Eddie Farrow will be attending the British Cardiac Society Conference in Glasgow in April where Dr Raj (CRY’s Research Fellow) will be presenting. Best Wishes Tony Dr Raj (CRY Cardiologist) Maralyn & Henry Bowen, Dave Oxborough (Eco Technician)

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Report from Mat Wilson CRY Screening Manager The CRY Centre for Sports Cardiology

“A man is a success if he gets up in the morning and gets to bed at night, and in between he does what he wants to do” Bob Dylan. For Anthony and I, this spring has been the busiest start to a year on record, period! However, I have enjoyed every minute of it, and I am proud to say the systems I and CRY have put in place to cope with additional volumes of work are successfully handling the extra load. Instead of a long description of each screening, I have bullet pointed the screenings since January 06 to April 06. ·England Rugby Football Union Under 18 Squad (60) ·Marathon of Britain Ultra Distance Team (20 runners) ·Newcastle Rugby Union Squads (30 players) ·England Rugby Football Union Under 19 World Cup Squad (20 players) ·Millfield School (120 children) ·Eton School (130 children) ·Bonas Pastor School, Lewisham (240 children) ·Derry Gaelic Football and Hurling Squads (60 players) ·Charlton Football Club (40 players) ·Lawn Tennis Association (30 players) This means that the CRY screening programme has reviewed 750 young individuals in four months. This number excludes Tony’s family screenings and the CRY CSC patients! When I first joined CRY, it would take a year to get this number; however, I am looking to a couple of week’s quiet time to catch up on my administration. Medical Research One of CRY’s aims is to contribute to medical research. Since Dr Raj has arrived, we have been really pushing forward with this theme. I have had 2 abstracts accepted for the American College of Sports Medicine and the British Association of Sport and Exercise Sciences and will be presenting, 1) “Cardiac structure and function in pre-post pubertal highly trained athletes”; and 2) “Are questionnaires and physical examinations enough when screening for diseases that have the potential for causing sudden cardiac death: The role of electrocardiography.” Dr Raj presented his paper on “Physiological upper limits of left atrial diameter in highly trained adolescent athletes” at the British Cardiac Society meeting in Glasgow last month. These are exciting times and in the next couple of months, both Dr Raj and I are hoping for more publication success for CRY. Lewisham Schools Project The Lewisham Schools project has kicked off in a major way, with 2 successful screenings at St Dunstan’s and now Bonas Pastor. We will be returning for follow-up Echo’s at Bonas Pastor next week. But we are delighted with the uptake and the willingness of staff in both schools to help CRY in anyway possible. It is with astonishment Issue 41

to see just how hard teachers work from day to day and to have the added complication of 240 teenagers running riot due to a CRY screening never ceases to amaze me. Many thanks to Mr Simon Thorogood and Mrs Patricia Slonecki. Schools and the CSC Anthony and I have also lectured at Kew School on the importance of exercise for overall cardiovascular health and diseases that have the potential of causing sudden death. Furthermore, we have had a group of 30 sixth formers attending the CRY CSC for a report they are writing for an A Level project. Next week Dr Raj and I will be presenting to 200 school medics from the Medical Officers of School Association (MOSA). MOSA was founded in the 1880's by a group of school doctors because it was recognised the hygiene in these schools was somewhat lacking. Not surprisingly infectious diseases in all their aspects was the primary focus for many years - until the advent of antibiotics. MOSA now welcomes topics such as sudden death, emotional problems, sports medicine etc. Hopefully, a few more schools might follow the successful programme of Eton, Millfield, Lewisham, etc. Running for Glory Congratulations to Steve Dale, from “Running to Glory” fame. Steve tragically lost his fiancé last year and ran the 2006 London Marathon for CRY. I remember examining Steve in the winter of last year and knew he had a mammoth challenge in front of him. It is with great pleasure to see him succeed, and a little bird has told me, he might be running for CRY in the up coming New York Marathon. Well done Steve! Marathon for Britain Furthermore, congratulations to the Marathon of Britain running team for completing the 2006 Marathon des Sables. I know what that feels like and realize the sacrifices you have to make in life to successfully complete it. The CRY CSC is pleased to have established a friendship with Rory Coleman, who will be attempting to break the world record of miles completed on a treadmill in 7 days. He is hoping for a whopping 75 per day for 7 days. The CRY CSC will be providing full physiological and cardiological support, with publicity on the BBC, ITV and SKY sports. Furthermore, we should be able to publish some more scientific research that will aid in CRY’s credibility within the sports medicine community. Mat Cardiac Risk in the Young

Bath Half Marathon 2006 by Simon Halliday am sure that everyone who was there will have their own memories of Sunday 19th March, and as I watched the rain cascade down yesterday under leaden skies, I realised how lucky we were to get such great conditions for all us athletes (!) to perform at our best.

Many people who contributed to CRY on the basis that I would actually finish should know that I did in a time of 2 hours and 16 minutes. A big sprint effort - sort of - in the last 200 yards, allowed me to catch an 80 year old runner on the line, but that was the only bright spot of an otherwise very painful last 3 miles. Everyone told me that I only had to do 10 miles and the rest would be easy - adrenalin and all that sort of thing. How wrong could they be! Talk about hitting the wall, or lots of them. It felt like someone was standing on my feet to stop my legs moving ...... being overtaken by a banana after 11 miles did nothing for my self-esteem but at least I beat the fairy (metaphorically speaking)! A good number of the CRY team beat two hours, and Jon Callard managed 1 hour 39 minutes - did anyone beat that? I haven't had a chance to see all the times. If not, then well done Jon - what a great effort. You clearly looked after yourself far too well for Newport, Bath and England to stay so fit! I pay tribute to Jonathan Webb and Michael Lynagh who were very doubtful runners and came through with flying colours around the 2 and a half hour mark. Thank you to Jonathan and Richard Hill, who kept my wife company all the way round. I am still not clear on how long they stopped for a tea and biscuit break at Richard's place......yet they were only minutes behind me at the close .....?! But in truth I take my hat off to Suzanne who not only kept her training a secret, but then ran a race to be proud of, and played tennis two days later when most of us could hardly walk downstairs. I hope you all saw her featured in the couple of SKY Sports features on the day which hit the screen last week - Paula Radcliffe eat your heart out! Jason Leonard's pre-run predictions in the Telegraph interview with John Inverdale - that he would sort us all out in the last 200 yards - came to nought due to a chest infection. He very nearly didn't run, so to get 6 miles under his (sizeable) belt was a great achievement, as well as arriving in Bath at 3.00am due to Twickenham commitments. Thanks, Jason. Paul Ackford and Dave Egerton ate up the course with their long striding technique, making it impossible to keep up with them, and our two flyers Tony Swift and David Trick cruised around the 13 miles making a mockery of the prediction that sprinters can't do the long distances. The Iron-Man Mike Teague from Gloucester way, steamed past me most unfairly with only two miles to go, claiming that he had to catch Richard Hill, despite my insistence that he was well behind me (in fact running with Webby and my wife......or enjoying a cuppa at his place). He wouldn't have been cheered like that by a Bath crowd before!! To our media man on the scene, John Inverdale, together with wife Jackie, thank you for giving the event so much publicity in the lead up. You must qualify as the fittest TV and radio commentator on the circuit!! Some of the guys failed to make it to the start - Will Carling, Rob Andrew and Ben Clarke all trained hard and were gutted to miss out through injury. But to lend their names to the day was the key thing so thank you, it meant a lot. Similarly to Peter Winterbottom, who had a personal commitment he couldn't miss, and so came and supported us at the dinner the previous Wednesday, as did Ben and Rory Underwood. I may say that Will was the first person to offer his support to the 8

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Bath Half Marathon 2006 by Simon Halliday charity run idea, and has been a great support throughout especially in the early days when calf muscles, etc were exploding and 13 miles seemed a pipedream. We were fully intending to test each others relative pace once and for all in the final yards of the run...... so it was especially sad that his leg went in the last days of training - thanks Will, as ever, for all your support. It was great to see some of the other Bath stars like Jon Hall, Gareth Chilcott, Nigel Redman, Audley Lumsden, Stuart Barnes, Martin Haag and Mike Beese come and share some drinking time with everyone, thus making it a special reunion. And not to forget the great Bath Coach, Jack Rowell, for whom it must have been nostalgic to see so many of his Bath players all together after so long. By the way, I have had so many e-mails from the CRY runners and supporters with their appreciation of the day, I kind of feel that we we should all enter again next year ..................OK, OK I am only joking!!! We had two main targets at the outset, to raise awareness of CRY and its objectives, and also to raise money for their various projects (I don't know the total yet, but it is well north of ÂŁ100,000). With 75 runners and countless supporters, I think we have had a good deal of success and everyone should feel proud of what was achieved last Sunday. To all of you who have donated to the charity, many many thanks and I hope you feel it was and is worthwhile. Our joint challenge now is to keep the momentum going, and I am sure that we will be able to do that. But for now, as we catch our collective breath, let's remember a special day full of hope and inspiration - and just a touch of sporting endeavour!! And finally, as for me, I don't quite know. To complete the run was everything, and for that Alan Watson my physio takes so much credit. Over the 12 months leading up to this run he has set my complete agenda, physical and mental, as well as providing encouragement and motivation throughout - although I have to tell him that I ignored his very spartan pre-run breakfast menu (sorry Alan, I went for double bacon and eggs!). Alan, in all seriousness, thank you for all you have done. Being vaguely fit again after so long is a new experience - so please everyone at least consider me for future sporting events (except sailing!) and we will see what happens .................... Simon Halliday

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Cardiac Risk in the Young

Bath Half Marathon 2006 by Simon Halliday We are delighted to announce that the massive fundraising event for CRY organised by former England rugby star Simon Halliday (left) has been an unqualified success. In Memory of Sebastian English (right)

"I went through the first wall at five [miles] and I’ve got a groin strain…... I’ll be OK for twenty minutes, then I’ll have to dig in and I’m dying for a pee, apart from that I’m fine."

"My feelings for Simon have not changed, not yet anyway!"

“I did 2:05 which that’s not bad for an 18 stoner......it’s the last three [miles] really which is hard and my legs, you know, they just get tired."

"I’ve gone past the six mile mark, it’s OK. I’m keeping Suzanne [Mrs. Halliday] company”

"I knew my race was run when I tried to mix it with The Banana and lost!" “It’s great. We met up and it’s been a long time since we have all been together so it has been good fun."

"I was fine for twelve and a half miles and then suddenly I was feeling really good and I thought God I’m going to do 1.45 - 1.46 here and then suddenly at 12 and a half miles my left leg suddenly decided it wanted to be anywhere in the world except on that course...”

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"All done in a good cause. Pleased we got round. The moment that you shouldn’t have missed was the final sprint along Pulteney Street where Webby had been racing all 13 miles with this big fairy, and he did him right on the line."

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Bath Half Marathon 2006 by Simon Halliday

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Cardiac Risk in the Young

Julie’s Interview with Simon Halliday - CRY’s New Patron How did you first find out about CRY? Following the sudden cardiac death of Sebastian English, I met up with Rupert and Stephanie, who told me all about the charity and its work. They had been alerted to CRY after the death of Sebastian was genetically linked to the death of his father, Howard, some ten years earlier, who collapsed in front of me whilst I was doing some rugby coaching.

“I look forward to that eight a week statistic going to zero. That may sound like a dream but I bet that eight families a week would agree.”

I still feel amazed by the whole experience. Can you explain about the Dinner you put on in London please? The London Dinner the Wednesday before was an ideal precursor to the run, apart from drinking too much alcohol, of course! David Trick, who organised the event, had agreed to run for the charity and proposed that the proceeds of the auction be donated to CRY. This kind offer triggered huge interest in the dinner, which already had a sporting theme. So I persuaded a number of people to buy tables, and we ended up with 520 people, quite incredible! I organised a video to explain about the charity and link the whole thing with the marathon and the rugby players response, which set the tone for the evening. It certainly boosted the proceeds, which amounted to nearly £40,000. Importantly, everyone had a great time.

What made you decide to become associated with CRY? Because of my personal connection to the family, I decided that I wanted to help raise the profile of CRY in some way, once I heard the terrible statistics that eight young people a week were dying of this condition. I know you have organised two phenomenal fundraising events for CRY – in the same week. Can you tell me about the Bath Half Marathon you took part in and how you persuaded so many of your team-mates to join you? Deciding to take part in the Bath Half Marathon was for many reasons. Firstly, I hadn’t run for 10 years after my rugby career finished and it was a great personal challenge for me to take on. In addition, Bath was where I had lived and played most of my club rugby, so in many ways it was my sporting home. I also decided that it was a good way to advertise the charity, given that it is such a high-profile event. The first person I mentioned it to was Will Carling and to my great surprise he said that he would like to run as well – a similar masochistic tendency, I suppose, to see if he could get fit again! It went on from there really, although I had to do a fair bit of persuading in some cases! It was beyond my wildest dreams that 15 of my International colleagues eventually agreed to run. Unfortunately, four of them didn’t make it due to injury, but they lent their name to the run, that was the main thing. It must have been brilliant to see so many runners all really passionate about CRY, many of them friends of Sebastian and Howard. How did this make you feel? I was overwhelmed that so many people decided to join in the run. It became like a runaway train, with over seventy people signing up. I think that it was a combination of their personal connection plus the impartial nature of the charity, not to mention the chance to improve their own personal fitness! 12 |

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Have you any idea of the total raised? So far we have raised just over £160,000, which is mindblowing. I had £50 - £100,000 as an initial target, so I cannot thank people enough for their incredible support. Having said that, I am not surprised, as the nature of the charity is such that it is hard to turn away from the tragic consequences of sudden cardiac death in young people. Is there any other sport you like to do? Apart from International Rugby, I played first-class cricket when I was younger. I love all sports except sailing (partly because I get seasick!) and horse racing which is deeply boring. What do you do in your spare time, if you have any? I wish I had some spare time! With two teenage children, life is full at weekends inevitably. I work a 60-hour week in the City, so if you allow for sleeping, there isn’t much left midweek! I read books avidly, as a former linguist, and with my new found fitness I can resume all those sports I had to give up! As our new patron, what are your hopes for CRY in the future? I feel very privileged to be asked to be a CRY patron. To my mind, the need to raise the awareness of sudden cardiac death is ongoing and a long term objective. The challenge for all of us is to consolidate the progress made by implementing on all the good words spoken. In my case, I hope to persuade the Rugby Football Union to make a meaningful commitment to screening across all age groups for people playing rugby in England. This means energy, time, planning and resource as well as money. I look forward to that eight a week statistic going to zero. That may sound like a dream but I bet that eight families a week would agree. Simon Halliday – April 2006 Issue 41

KIDS FOR CRY The Kids for CRY theme is: Rugby S

Squad

Six Nations

Cup

Union

League

Scrum Try Conversion Penalty Coach

Tactical Ploys – How To Be Selected Carston Catcheside gained eight caps for England in 1924-1927. He had a bizarre way of attracting attention. After his first international trial, he wrote his name all over the bald head of one of the selectors. IT WORKED! World’s Longest Try – The world’s longest try was scored in Australia. The team ran the ball around Albert Park Lane, Victoria from 4-13 March. There were no knock-ons, or forward passes, and the ball was touched down in the proper manner. This distance covered was 1,470 miles!

Capped in Error, but did not Complain – Arnold Alcock, an average Blackheath player, was amazed to receive letter inviting him to play for England v South Africa in 1906. England secretary was equally surprised to see Alcock reporting for game, since letter should have been sent to Andrew Slocock. Too late to change team, so Alcock played!

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Best Loser –Carles Verseld became a national hero in South Africa in 1891. He was the only player to score a try (then worth 1 point) against the touring British Lions, who won all 19 matches and scored 224 points to 1!

Most Absent-Minded Referree In the 1950s All Black full-back George Nepia was taking part in charity matches. In one of them he scored a unique try. The ball came straight to him; he saw a gap in the defence and went straight through to score under the posts. What made it unique was that he was the referee at the time!

Cardiac Risk in the Young

KIDS FOR CRY FUNDRAISING In Memory of Sebastian English Pupils at Amesbury School, Hindhead, Surrey have sold CRY wristbands and collected £554.45.

“A

fter growing two huge pumpkins in the garden, carefully nurtured by my brother Ollie, we wondered what to do with these heavyweight squashes. So we decided to make good use of these orange beasts and run two ‘Guess the Weight of The Pumpkin’ competitions at the café where I work, The Wild Strawberry in Woodbridge, and our Dads local pub The Dog in Grundisburgh. Much fun was had as customers fought it out to guess the correct weight to win not only a bottle of champagne and port but more importantly a tray of the renowned chocolate brownies! And in the pub Dad came home with tales of drunken men deliberating over its exact weight for hours. In total we managed to raise £80 for CRY in memory of our cousin Sebastian English. We look forward to coming up with more seasonal ideas to raise money for such a worthwhile cause.” Camilla and Oliver Keates

“I am Rupert Hunter’s sister and my children Charlotte, Lulu and Sam Christopherson, raised around £80 by selling the CRY wristbands. We did a Car Boot Sale and Sam stood by a chair with Sebastian’s story on a poster and people who came to our table were interested and gave their money. Also Lulu and Sam went around our friends and raised most of the money. The children were very determined and also very moved by the response they received. I enclose a cheque for £100 as it makes it a nice round number! It’s a very good cause – so good luck and we shall endeavour to increase the awareness amongst our friends and schools and I hope eventually every child in the country will be screened – keep up the good work” Rachel Christopherson.

In Memory of Mike Scott “Please find enclosed a cheque to the value of £75 from Lady Lumley’s School. I sent Postcards to them and one of their 6th Form Pupils raised money at their Sports Day. Their continued support and remembrance of Mike is just wonderful, they never forget and are always more than willing to help in any way” Marje Scott. People in photograph:Sue Ellis (Deputy Head) Sam Skinner, Claire Douch, Rosalind Pilgrim, Matthew Smith, Jorgina Allsopp, Marjorie and Allan Scott. “I enclose a cheque for CRY £486 raised by the school community at the end of term in memory of Mike. His legacy of sportsmanship and service continue to inspire our students” T. Boag. “Christmas time is very sad for many people and it is a time that we especially think of Mike as he died on 28th December, and so to receive this cheque and know that they still remember Mike never fails to bring a tear to our eyes. They really are a very special school” Marje Scott The Park Services Section from my place of work celebrated their Christmas party with a Ceilidh and had a great time. Afterwards there was a surplus of £90 and they all agreed that instead of a refund, the money should go to CRY.

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KIDS FOR CRY FUNDRAISING In Memory of Ben Carter “We are pleased to enclose a cheque for £1050 for the CRY charity. This amount has been raised in memory of Ben Carter. 14 year old Ben was a pupil at our school, who sadly passed away in April of last year.” Pam Scott Headteacher.

In Memory of Therese Field “Enclosed cheque for £50. This money was raised for CRY by one of my pupils Sarah Page who did a car boot fair with her family. She didn’t have to give this money to charity but has been a pupil of mine for 4 years and has participated in all my charity shows. This has made her a keen supporter of CRY and she wanted to donate this money.” Tara Gore

Elizabeth & Stephen Kelly wih new baby Aimee being presented with a cheque

In Memory of Nicholas Thorne “Please find enclosed a cheque for the sum of £250 being monies raised through the Year 9 children of St. Bedes School, who held a charity day under the guidance of their teacher Sally Sharpe” Marion Mitchell, Finance Officer. “Please find attached a donation in the memory of Nick Thorne who was a student at Oakwood School. Best Wishes” Andy Thompson

In Memory of James Kelly

“I am delighted to enclose a cheque for £650 towards the James Kelly Memorial Fund from St. Patrick’s Primary School, Kilsyth, Gloucester. For the third year running the school held a walk to raise funds for CRY and the children from Primary 2B, with the help of their teacher Mrs. Parkinson, have also been selling wristbands. The day of the walk was wet. The kids started outside but when the weather got too wet they moved inside and continued their walk inside. I have 2 children attending the school, Shannen aged 9 and Ryan aged 7, so they were involved in the walk. I took my 3 younger children Eve 3, Connor 1 and Aimee 5 months down and we walked around with some of the children. Mr. McKendrick a teacher at the school got his guitar out and had all the children following him, singing songs. Once again it was lovely to witness but again a very emotional day. It is lovely to see children walking around and singing and remembering my wonderful son James and just seeing the way he is remembered is very touching. So again a BIG THANK YOU to all of the staff and pupils at St. Patrick’s.”

The children of class 2b wearing their wrist-bands.Holding hands with Elizabeth Kelly are D’Arcy McLaughlin on the left, her son Ryan on her right and sitting on her lap her daughter Eve

Seavington Pony Club “I am delighted to send you a cheque for £140. This is the proceeds from a collection made at our Junior Pony Club where a local farmer kindly allows the use of his grazing for the ponies for the week and the money is passed to a charity of his choice. Our junior camp was this year attended by 35 children aged 4 – 11 years” Alison Corr, Treasurer Issue 41

Kinders Mill Day Nursery Kinders Mill Day Nursery have chosen CRY as their sponsored Charity for the year and have sent a donation of £59.26 Cardiac Risk in the Young

KIDS FOR CRY FUNDRAISING In memory of Charlotte Wright “At home I have been selling badges to my friends and family. I have been selling them for £1 and I have raised £500 for CRY, £200 of this was given to me by the kind people of the Welling Round Table. People have been very generous in helping me raise the money. I hope you are pleased with the money. I am selling the left over prizes. Please can I donate this money in the name of my friend Charlotte Wright who died in May 2002” Amy Mead aged 12.

In memory of John Luxford “This cheque represents the money we raised in memory of John Luxford who was a student at our school, and it was the parents wishes that we send some of the money we raised to CRY. This would be a fitting tribute to John.” Jill Bertolone, Charity Co-ordinator.

In memory of Eamonn Chipperfield Carr “As you can see from the enclosed cheque, my niece Amelia has been very busy with her fundraising events and has raised £450 for Eamonn’s Memorial Fund. She enjoyed her table top sale; the weather was good and the event had a mention on the local radio station WM. With family donations, Amelia made a total of £250. We held a raffle on Eamonn’s 5th Anniversary in September and had various collections over the Christmas period and raised another £200. I am so very proud of Amelia as she has organised so much, and yet she’s only 8 years old! Keep up the good work!” Love Julie (Chipperfield Carr)

In Memory of Shaun Palmer “Please find enclosed a cheque for £10, it was raised by Shaun’s cousin Gary Palmer who made a lot of Scooby’s. Gary sold them to his friends at school for 20p each and he wanted to give the money for Shaun.” Mandy Palmer

In Memory of Cecilia Barriga Miriam and Elizabeth, class friends of Cecilia, have raised £400 selling CRY wrist bands and holding a sweet and cakes sale; helped by Elizabeth’s class speech.

Blossom House School

Blossom House School in Wimbledon have donated £250 to CRY. Pupils from the school went to the Wimbledon Tennis Tournament on the last Saturday im July 2005

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“THANK-YOU. As you know I took 14 children to Wimbledon on Saturday 2nd July. We all had a wonderful experience as always. We had a very stress free and enjoyable day. We would like to say thank-you for the experience. I enclose a small donation from all of us who went on the day.” Emily Mason A donation of £75 was given. Issue 41

Running For CRY

Sarah Wullink Sarah Wullink from North Lincolnshire has raised £430 for CRY after completing the Great North Run.

Helen Miskelly “I took part in the Great North Run. This is the money I raised through sponsorship” Helen Miskelly. Helen donated £135 to CRY.

Mark Robson “Please find enclosed a cheque for £730. This is the money I raised in sponsorship for The Great North Run in Newcastle in September. Slightly below what I’d been hoping for but not too bad!” Mark A. Robson

David W. Work

MychaelaGardiner Mychaela Gardiner from Sudbury, Sussex has completed the Great North Run and raised £325.11 for CRY

Andy Markham Andy Markham of Sainthorpe, Lincs competed in the Great North Run for CRY and has made a donation of £280.

David Knowles “I completed the Great North Run on behalf of CRY last week. I raised £363 in total.” David Knowles.

Simon Watts Mr. Simon Watts of Stocksfield, Northumberland successfully completed The Great North Run and raised £979.97 for CRY via sponsorship and justgiving.

Rose Plowman Rosie Plowman entered the Great North run and has raised £320. “I would just like to say thank you for giving me this opportunity to run the Great North Run for your charity as I had the best day ever and I would love to continue this in the near future and compete in other events” Rose Plowman. We have received a matching donation from Abbey Charitable Trust of £320.

“At last here is the money I raised from The Great North, sorry for the delay. Thoroughly enjoyed it and did decent time of 1:37:35!! Thanks for the support.” David W. Work David raised £205.13

Simon Dipple “Please find a cheque for £350 to CRY. I ran the 2004 Great North Run in aid of CRY and this is the money that I eventually managed to collect in!” Simon Dipple. A further donation of £5 has been received.

Nicola Jasieniecka “I ran the BUPA 2005 Great North Run in Newcastle for CRY and have been collecting sponsorship ever since. I have enclosed £423.” Nicola Jasieniecka

In Memory of Laura Fox “I recently ran the Great North Run in aid of CRY and have just about recovered enough to collect the sponsorship together and send it out to you! I enclose £398, this is in addition to the money received online from my justgiving website £824.36. Running for CRY kept me going through those very long middle miles!” Dr. Jonathan Haigh.

In Memory of Gavin Findley “Gavin competed in the Great North Run on the 22nd October 2000. He finished the race but unfortunately collapsed and died at the end of it from a heart attack at the tender age of 34 years. Gavin was a very competitive and keen athlete, he played football as a youth and won many medals. He spent 12 years in the Army from the age of 19 years and again was always very active. In April 2000 he competed in the London Marathon and that same year abseiled off the Humber Bridge (all for charity). He was a wonderful Son, Brother, Nephew, Grandson, Daddy and Husband, and is sadly missed by all his family and friends. It has left a big void in all our lives. Myself Jill Findley (Mother) my daughter Paula, together with friends from Broadland Housing Association – namely Russell Heath, Andrew Stevenson and Sally Farrer – are all competing in the Great North Run on the 18th September 2005, in memory of Gavin, and to raise money for the Charity CRY (Cardiac Risk in the Young).” Jill Findley. Jill and her family and friends raised £1484.90 Issue 41

Cardiac Risk in the Young

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Running For CRY

In Memory of Charlotte Adams-Turnbull Pippa Bell from Durham City competed in the Great North Run, “I ran in memory of my daughter’s friend Charlotte and her mum Debbie has helped me to raise a grand total of £2562.24. Debbie has been so thrilled with everyone’s response in memory of her daughter Charlotte and we know CRY will put the money to good use” Pippa Bell.

In Memory of Sebastian English “I have great pleasure enclosing cheques to the value of £1,300 with respect to the sponsorship I raised by completing this years Great North Run. I managed to raise £650 in sponsorship, which was match funded by Professional Wealthy Management Ltd.” Stephen Dickinson. The funds were split between three charities. Richard Ranken has successfully completed the Great North Run and raised £550 for CRY

In Memory of Pete Reynolds

In Memory of Adrian Regan

Jean and Louise Hebden and Jane McGill

“Please find enclosed cheques for £750 from Peter McNamara and his brother in law Dave Sharp. They both ran the Great North Run in memory of our son Adrian who died in April 2003 age 34 years.” Joan Regan (Mrs)

competed together in the Great North Run raising £1000 in memory of Pete Reynolds.

In Memory of Andrew Parr Philip Smith, a friend of Andrew’s took part in the Great North Run and has given a donation of £342 to CRY. Phil Parker from Preston, Lancs completed the Great North Run in 1 hour 35 mins, running in memory of Andrew Parr, and raised £942.83. Phil’s family have been friends of Andrew’s family for many years and Phil was very happy to raise money by sponsorship for CRY.

In Memory of Simon Pangborn

In Memory of Jeremy Cole

Steve Rowlands competed in the Great South Run raising a total of £1005.91. He wished particularly to thank his main sponsors :Rob Hele and all the Staff and Regulars of The Churchillian Public House Portsmouth; Nick and Vicki Stoneham and all the Staff and Regulars of The Eastfield Hotel; Southsea; Craig Pangborn; Esso Service Station, Hook, Hampshire.

“A good friend of ours has just run the seven sisters marathon at Eastbourne (Beachy Head Marathon) and has raised £300 via justgiving for CRY. He has asked us to ensure that this money is put to the Jeremy Cole Memorial Fund. It is quite an amazing achievement as it is reputably one of, if not the, hardest marathon runs in the world due to the hilly nature of the course” Nigel and Jenny Cole. Total so far, £253.33 (8/11/05)

Stephen Beales and competed in the New York Marathon and has raised £390.26 via Just Giving.

James Smith has successfully completed the New York Marathon and has raised £410.26 via the Justgiving Website.

Joanne Lear has taken part in the 2005 Edinburgh Marathon. Her time was 05.19.40 and finishing position 4053. She raised £412. 18 |

Cardiac Risk in the Young

Stephanie Hebblethwaite has competed in the Standard Chartered Marathon Singapore, raising £180.51 for CRY.

Ciaran Andrews of Bangor ran the Belfast Marathon for CRY and has raised £350.

Mr. Edward Smith from Chiddingfold has donated £1005 “On the 25th of September I ran in the Berlin Marathon, I have no doubt you will put the money raised to good use” Edward Smith.

Issue 41

Skydiving for CRY

Andrew Hodge of Romsey carried out a Tandem Skydive raising £215.

Neil Birchell performed a Tandem Skydive and raised £175.50

Antony Farley executed a Tandem Skydive and donated £200 to CRY.

Gary Smith and Neil Birchell are employees of United Utilities PLC, who have made a donation of £500 from their Employee Matched Fundraising Scheme.

Gary Smith from Huyton, Liverpool carried out a Tandem Skydive and has raised £235.13 for CRY

Lynne Babbington has taken part in a ‘Birthday Jump’ and raised £936.92 for CRY via Justgiving.

Jason Home from Peterborough has executed a Parachute Jump and raised £195.57.

Thomas Humphries of Westvale, Kirkby and executed a Tandem Skydive and made a donation of £155 to CRY.

Cindy Pride from Westbury, Wilts has executed a Tandem Skydive, raising £135.

Jasy Kara from Sudbury, Middlesex has performed a Tandem Skydive, her donation to CRY was £240.27. Barclays plc have matched the donation of £240.27 under their Barclays Community Programme. “I am delighted that we were able to add to the funds raised by Jasy and to contribute to your work” Jeannie Marsh, Community Administrator.

Steven Edwards of Frimley has performed a skydive in memory of Martyn Edwards and has donated £135.50.

Issue 41

Cardiac Risk in the Young

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Skydiving for CRY

In memory of Martyn Simpson “On the 15th July 2005, 25 people including myself participated in a skydive for your charity, in memory of Martyn Simpson our friend and former colleague. I work for Waitrose plc, as did Martyn, and they have donated the sum of £1000 to CRY in memory of him.” John Gepp Cheryl Smith organised a Tandem Skydive event with all her friends, who are: Steven Edwards

Gareth Edwards

Anthony French

John Gerp

Lisa Jacobs

Andrew Jacobs

Laura Jones

Natasha Kelly

Joseph Simpson

Neil Simpson

Keir Smith

Adam Smith

Darren Southam

Richard Southam

Claire Sweeney

Sarah Brady

Andy Faulkner

Katie Jones

Siobham Rowan

David Rowan

Jointly they raised in excess of £13000 for CRY.

In memory of Nick Barratt I am pleased to enclose cheques for £824 for CRY. This has been raised by a sponsored static line parachute jump completed at the North London Parachute Club on 10th July by Sarah Barratt, Fraya Southcott and Ben Redman. The jump was done in memory of my husband Nick Barratt who died of Hypotrophic Cardiomyopathy in July 2001” Sarah Barratt.

In memory of Mike Scott

Chris Nichols from Kirkbymoorside, York carried out a Tandem Skydive, raising £2020.50 in memory of Mike Scott.

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Cardiac Risk in the Young

Issue 41

Our Fundraisers

In memory of andy gard A donation of £275.50 has been received from the St. James Surgery, Essex, which comes from the proceeds of their Christmas raffle. Mrs. S Vousden of Little Clacton has held a jumble sale and raised £100. We have received, via Caroline Gard, a cheque for £2000 representing fundraising carried out throughout last year by the Chelmsford Ladies Golf Committee. Caroline Gard has forwarded £700 raised from the July ECG testing in Colchester.

In memory of Andrew Blow “I have enclosed a £100 cheque to be included in the Andrew Blow Memorial Fund from my sister Cecilia and her husband Dr. Shaun O’Connell over the Christmas period” J.F. Blow

In memory of William Whittaker A donation has been received for £153.32 from Mason & Stokes Funeral Services, this being donations received at Mr Whittaker's funeral service.

In memory of Jack Ladley "Please find enclosed the sum of £525. Our seven year old grandson, Jack Ladley, died suddenly while on holiday in Spain nearly three years ago. His totally unexpected death devastated the family. The diagnosis was "Heart Attack". I recently celebrated my sixtieth birthday so I asked for donations to CRY instead of presents. I am delighted to send you these cheques to further your work into this very distressing problem." Thia M Hughes

in memory of gary burke A charity night was held at Stanley Social Club in Bootle. This included raffles and auctioning a signed Everton Shirt. £600 was raised and John and Theresa Burke have donated this in memory of their son Gary. Ruth Lowe represented CRY and collected the cheque at the Aintree Public House, Bootle in June. "We are a Sunday Football League based in Liverpool and each season we play a charity match. Previously known as the Formers Shield the trophy was renamed the Robbie Murphy Memorial Trophy in memory of a player who sadly died after one of our league games in 2002. We take a col-

lection at the match and at our league meeting and Robbie’s family asked us to donate to Shelter the following year. Last year we donated to Alder Hey Childrens Hospital. In January 2005 Gary Burke from Wood Street F.C. unfortunately died during a training session. Normally the charity match is between the league winners and the McDonnell Cup winners (inci-

dentally renamed after Peter McDonnell killed at Hillsborough 15/4/89) but as the cup winners had left the league we invited Wood Street to take their place. The match officials very kindly waived their fees which were then included in the collection which was also swelled by raffling one and auctioning another of the match balls from the finals. Wood Street F.C. on behalf of the Burke family, have asked us to donate the £275 cheque to your organisation. We hope it will come in useful to further your work to help Cardiac Risk in The Young.”

in memory of andrew mark croxson "Please find enclosed a cheque for £350, which is a donation from my company to CRY. We obtained this money from the saving we made last Christmas by not sending out Christmas cards to our customers. CRY is very special to myself because my own son Andrew Mark Croxson died at the age of 24 on April 10th 1999 due to sudden adult death syndrome. Andrew it seems was a classic case being a sports person and very healthy and had in fact been playing football the day of his death. My youngest son Timothy does have a heart defect but is under the hospital and it appears he will now lead a normal life, he is now 22. My other son aged 27 appears to be perfectly healthy. We hope this donation will help in some small way in the work you do in making people aware of this disease." James Croxson, William Croxson & Son Ltd.

Issue 41

Cardiac Risk in the Young

Our Fundraisers

In memory of ashley livesey "Please find enclosed a cheque for the amount of £1,000 which has been raised by friends and family of Ashley Livesey, namely 'Team Ash'. The funds were raised by participating in many different events such as organised bike rides, 10k runs, parachute jumps, and a benefit night, all during 2004. As you are aware we lost Ashley our 15 year old son in March 2004 to sudden adult death syndrome whilst he was running in a cross country event representing his school. We have recently attended the inquest into what happened to Ashley, and after all the evidence and the pathologist report the coroner recorded the reasons as ‘unascertained’ but as this particular coroner has had to record this in other similar cases and apparently as the law has recently changed he would record the causes as S.A.D.S. which adds some weight to what we are all campaigning towards." Gary and Julie Livesey group of business colleagues from Oldham have ridden the Sustrans C2C route many times over the years, and this year their money raising was to go to Team Ash. What’s more, Gary and I were invited to join them over the three day, 170-mile long ride.

The C2C ride has many options, dependent upon what kind of riding suits the participant. The route that we were to take is generally regarded as the hardest, as it is almost 50% off road, with some tracks passing over 2000 feet in the Cumbrian and Northumberland mountains.

Assembling on the quayside in Whitehaven on Friday morning, the crew consisted of Hugh, Tony, Jeremy, Paul, Phil, Sam, as well as Gary and myself. Also there, with the hardest task of all, was Andy who drove the backup bus, grinding along behind whilst taking care of all our logistical and refreshment needs. We lined up for a group photo, dipped our rear ends in the sea (as is the custom), and without further ado we were off along the disused railway line that runs from the town centre and out into the heart of Cumbria. Although we had maps, we rarely needed them, as the entire route was marked with blue Sustrans C2C signs. Many thousands of cyclists take part each year, and we came across many others doing the same thing over the three days. The first part of the ride was easy and the weather was hot with no cloud (perhaps a little too hot for some at 80 degrees +), and it stayed so for the entire ride. Eventually we came to the hills, passing through Winlatter Forest (the highest forest in England) with its stunning views and hairy descents. Emerging from the forest we 22 |

Cardiac Risk in the Young

took refreshment at the inn, where I was bought a flagon of beer. Not being used to the filthy stuff, I then had a problem with the trees suddenly jumping out into the middle of the track, which was quite disconcerting. Eventually we wobbled into Keswick, had a shave, a shower and a...... er, change of clothes before a hearty night in the town. Saturday was the day of monster climbs and an early start was necessary. We stopped briefly at the ancient stone circle as we climbed out of Keswick, contemplating the

druids of old in what surely must have been the crucible of the Lake District in ancient times. Much huffing and puffing ensued as we slowly made our way over mountain after mountain in the stifling heat, until the lakes were left behind. A quick detour took us to Penrith where Phil bought us all an ice-cream (aptly from an ice-cream trike). I thought we’d done the worst of it, but of course there was a sting in the tale as we rode, pushed, slithered and slogged up the slopes of Hartside Height. We were all flagging by the time the summit was made but, after a quick re-fuel at the inn, we only had a 5 mile downhill blast which took us straight to the Alston youth hostel. Alston was a small town with friendly locals who we kept bumping into as they, and we enjoyed Saturday night on the town Issue 41

Our Fundraisers

(which consisted of several pubs only). That night, as the night before, Gary got little sleep (in fact no sleep), but this did not seem to be affecting his ability on the bike, as he was flying up the hills like some kind of polka dotted endomorph from the Tour-de-France. Tony was finding the hills hard work as he was suffering more than most due to the heat, but he never gave up even though it would have been easy to just jump in the bus. Sam was doing well as, even though he had youth on his side, he had never undertaken a ride of this length. The final day started like the last ended, with one big climb after another (5 in all I think), and 70 miles to be covered. Our packed lunches from the youth hostel were swiftly devoured as we took shade from the sun in a bus shelter. Although it was evident that it’s nocturnal function as a public convenience was regularly exercised, we crammed in anyway. This was at the foot of the last climb, which had alarming signs on the gates stating “Beware of adders. If bitten get the hell to a doctor...” At the top of the moor was the start of the Waskerly Way – a 35 mile long disused railway line with a gradual downhill grade which eventually met the sea in Sunderland. Apparently the president of Sustrans, when asked, stated that it was his favourite part of the entire national network. This was like manna from heaven after the hard riding up to that point. The track was dry and the wind was directly on our backs. Although a railway line it once was, it was

by no means boring, with many changes of scenery dotted with sculptures and remnants of our industrial heritage. The gentle slope combined with the wind on our backs, allowed all eight of us to stay together, wheel to wheel, for long stretches at high speeds. Sam was setting the pace early on with all seven tucked behind. The dust being kicked up by sixteen knobbly tyres was quite a considerable portion, and by the time we reached the Stadium of Light we were all caked in the stuff. Gary and I rode along the harbour to the beach for the dipping in the sea of our front bits (as again is the custom), before loading the machines onto the bike wagon, generously supplied by Phil. A quick trip along the promenade later and we were all tucking into well-earned fish and chips. Richard

In memory of andrew ridgeway would like to donate the collection made at my late husband's funeral to CRY. Having read articles, since Andrew's sudden and unexpected death, I feel that it is appropriate. Andrew was 38 years old when he suddenly collapsed and died instantly with the cause of death being Acute Cardiac Failure and Calcific Aortic Stenosis, which had been a result of undetected rheumatic fever when he was about 5 or 6 years old. Andrew had been a long distance runner since the age of 12, being consistently successful for the Wrexham Athletics Club during his school years and then competing for Wales in the army as a seventeen year old soldier where he came 3rd in the event. Andrew left the army after a short time and stopped competing in races but continued to keep himself fit by going for runs in the evening between 5 and 8 miles. He would cycle to work daily even if the car was available purposely to keep himself fit as in the last year or so he was finding his running more difficult. Eventually he found he had to stop for a few minutes as his chest would tighten and his legs would go "dead" Once he had rested for a few moments, Andrew could complete his run. In the end Andrew went to see his GP who did various tests and sent him for a chest x-ray. Everything came back clear and the GP gave Andrew an inhaler to take 15 minutes before his run, putting it down to asthma. Andrew was to go back if he felt things did not improve. Regrettably, Andrew never went back to see his doctor, assuming that his age was partly to blame for his fitness. Sadly on 19th January 2005 Andrew went out for a run but returned about 15 minutes later saying that he had found it too difficult. He was talking to me in the living room (still standing) about the Man Utd match on the television when he said calmly "I feel dizzy". He fell to the ground and died instantly. When I discussed the Post Mortem results with the consultant he was amazed that Andrew had been able to be so fit with his condition as one of the heart valves was so tight he had been running on only two valves and that we would probably not have considered doing an echo test if he had seen a patient, as he would not have believed that someone would be able to continue to run these distances with these heart problems. He did state that the symptoms that Andrew had were the exact symptoms of the Calcific Aortic Stenosis. This makes me very sad that this wasn't looked into as the reason for it seems to be - if you are fit and healthy, you can't possibly have a serious heart problem. Andrew leaves behind myself, Ceri, and two young son's, Callum, age 9, Sam age 4. It still does not seem real, I don't know if it ever will. I was pleased to find this charity as I wanted the donations to go to a charity that would have meant something to Andrew and may have made a difference to him if it had been around when he was younger. I hope this gift helps to make a difference." Mrs. Ceri Ridgeway The amount collected was £1011.59

Issue 41

Cardiac Risk in the Young

Our Fundraisers

In memory of Matthew Wilkin Ickenham Churches Womens Group, Ickenham, Middlesex, have made a donation of £280 as a first contribution to the Matthew Wilkin Memorial Fund. “The money was raised at our “Summer Sale” on 16th August which included plants, cakes and afternoon teas. The afternoon was well attended and gave us the opportunity to hand out leaflets promoting the work of CRY” Diana Holland (ICWG Leader)

In memory of malcolm jeffries A donation has been received for £110 from Mrs K Jeffries in memory of Malcolm Jeffries.

In memory of Phil Holland “I am enclosing a cheque for £300 for CRY. On 23rd July, Jim and I had a joint 60th birthday party and we said that we didn’t want any presents but suggested that if people wanted to give us something they should give us a monetary gift in memory of our son, Phil – so that’s where this money has come from.” Barbara and Jim Holland.

In memory of David Hamilton

In memory of Joan Mary Young

Mark Bryden raised money by taking part in a ‘Charity Walkforlife for CRY’. Sarah Zouiten has forwarded £603. Sarah has received £50 from 14th Kingston and Merton Boys Brigade in sponsorship.

We have received donations totalling £215 from Mrs. C F Paul, A & J Young, K.M. Young and Diane HortonStephens in lieu of floral tributes at the funeral of Joan Mary Young

In memory of Amy Jayne Russell “I am writing to make a donation of £137. My best friend Amy Jayne Russell sadly passed away on 15th October 2004 at the age of 20. I had already registered to do the Great Manchester Run on 22nd May 2005. Even though we didn’t know the exact cause of Amy’s sudden death in Fuertaventura, we thought the probable cause of her death would be related to CRY and it’s work. I completed the run in 1 hour and 6 mins, wearing a T-shirt with a picture of Amy on the front and CRY’s logo on the back. I really enjoyed the run, it was hard but thinking of Amy kept me going. There is another run planned for the 4th September 2005 (the Hydro Active Women’s Challenge) in Liverpool. Many of Amy’s family and friends are doing the run and raising money for CRY again so no doubt you’ll be hearing from us soon.” Caroline Johnson

In memory of Neil Wickers & David Staff “Please find enclosed cheques made payable to CRY for £770, which my husband and I raised for our Silver Wedding. My cousin Steven Burrows died suddenly at the age of 34 a few years ago and our family have supported your charity ever since. Could I please ask for £400 of the total to be given to the Neil Wickers and David Staff Memorial Fund and the remainder to be allocated at your discretion” N. Armer (Mrs) IN MEMORY OF STEVEN BURROWS Mrs. Lucy Baldwin has donated £786.85 to CRY in memory of her husband Jonathan Baldwin who died suddenly aged 54. “Jonathan was the father of Tom Baldwin who was David’s best friend at school. After Jonathan’s death, all his family unanimously requested that any donations go to CRY, in memory of Jonathan and David, who was held in high esteem with the family.” Granville Staff IN MEMORY OF JONATHAN BALDWIN “We received a letter from Steve Baines (who works on our offshore platform) and Janette Hernan, requesting donations for your worthwhile charity. Please find enclosed a cheque for £100 in support and good luck in your future fund raising.” Kevin Cochrane, Asset Manager, Centrico Energy, Morecambe Area Irene Wickers has forwarded a cheque for £326 being proceeds from a raffle they held at Darwen Access Point on Saturday 3rd December where they held the screening. A further £163 has been received from the raffle. Issue 41

Cardiac Risk in the Young

Our Fundraisers

In memory of pamela Mackenzie have enclosed cheques for the sum of £910 as a donation for CRY, it is in memory of my daughter Pamela Mackenzie. All money raised was through family, friends and neighbours selling football cards and also handing in everything from brick-a-brac to clothes for a car boot sale we were doing. I have spoken on the phone to a few members of the CRY staff but as yet have not given many details regarding my daughters death. Pamela Mackenzie was aged 23 at the time of her death on Sunday 24th August 2003, she left a little boy named Kyle who was then 2 years old. She was a very loving daughter to my husband and myself and a great and loving mum to Kyle and a loving sister to her sister Tracy and Brother-in-law Frankie. She was a very happy person who was liked by

“I

“Myself, friends and cousins all did the Woman’s 10k. Together we raised a total of £1865 which I have enclosed. The reason we ran this was to raise money for CRY in memory of my sister Pamela Mackenzie. Pamela died suddenly on 24th August 2003 age 23. She was a brilliant mum to her wee boy Kyle who is now nearly five. She worked as a nursery nurse and loved her job. I could

everyone and loved her job as a nursery nurse. She was also a very fit person and had no illness whatsoever. Pamela had been out with her boyfriend and stayed overnight at his house, we got a phone call at 4.05 on Sunday morning from her boyfriend saying he was waiting for an ambulance as Pamela was not right and he thought she had taken some kind of fit. We arrived at the hospital five minutes before the ambulance but Pamela had already passed away,

probably go on forever here about how bubbly, outgoing and loving she was but as this is only supposed to

In memory of David Elliott I attach hereto a cheque for £265, which I would like to contribute to CRY’s funds.

although the doctors still tried to save her, but it was just too late. The cause of death was down as ‘unascertained’ but when we got the post mortem report it was stated Cardiomyopathy, something we had never heard of. My doctors explained that she would not have felt a thing as it would have happened so quickly but also that it was normally genetic, so we have all been screened and were all clear although my wee grandson attends the hospital again this November, as with him being so young he will get screened every couple of years. As you can imagine it has been a terrible time for all the family and something that is always on our minds. We all miss her so much and hope that with all your good work something positive can be achieved. Thank you” Mrs M. MacKenzie be a short letter I wont, but as you can imagine on the day of the run emotions were running very high, most of us had never done anything like this before but with Pamela in our thoughts we all managed to complete it with a great sense of achievement. We hope to do more for CRY in the future (an extra £10 has been added since the photo was taken)” Tracy Cameron

In memory of Paul Goodwin We have received a donation of £100 from Mrs. P. Goodwin.

I work for the Education Department at County Hall, Durham and with the help of colleagues we raised this amount by holding a Xmas raffle and a ‘Guess Who’ competition just before Xmas. Eileen Elliott

“This is sent in memory of my son Paul who died of SADS on 3rd January 2005. He left a wife, a four year old son and a baby on the way and a second son was born in July. The 7th September would have been Paul’s 33rd birthday.” Mrs. P. Goodwin

In memory of Martin Spencer-Palmer

In memory of Dominic O’Loughlin

Emma Spencer-Palmer has raised £301.28 as at 12th December 2005, via her web page ‘Forever Young, Forever Loved’ in memory of Martin Spencer-Palmer.

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Cardiac Risk in the Young

The Brighouse and Rastrick Brass Band has made a donation of £250 in memory of Dominic O’Loughlin.

Issue 41

Our Fundraisers

In memory of Ian Bowen Maralyn Bowen and her friend Chris held a Tombola at Morrison’s Supermarket and raised £140. The Burden Preparation Golf Day raised £221.“This event was again arranged by Glen Shepherd and Frank Spencley. I think this is the 5th year but I am not sure as the time passes so fast. Kenny enjoyed the day very much. It was a lovely warm sunny day

the perfect weather for golf, the evening meal was very tasty and the drinks kept flowing all night – so I am told. More money was raised this year than any time before because John Crow, Bob Linton and Paul McCann donated their winnings back for CRY”

“Please find enclosed a cheque for £1,992.85 for Ian’s memorial fund. It is from the Steelmaking Charity Night on Saturday 29th October. It was a Halloween Dance, the group was called ‘A Different Beat’ they were really good. The buffet was beautiful, we all had a fab night. The night was arranged by Martin Cooper, Jenny Wesson, Mike & Pauline Palmer. We are hoping to also get a cheque from Barclaycard because Angie Posthill works for them and as she helped to sell tickets. Mike, Pauline, Jenny and Martin Mike, Pauline, Jenny and Maralyn must have worked very hard to organise such a brilliant A Different Beat night, this is the second year running they have organised this for CRY and we are very grateful as this money will go towards our screening in February.” A further donation of £750 has been received from Barclaycard via Angie Posthill. “On Friday I went with 2 of my friends Chris and Sue to Morrisons Supermarket and we held a tombola. The children with their mums seemed to be drawn to the stall because it was all toys, sweets and selection boxes for Xmas. We also handed out CRY information leaflets and we all said we enjoyed our afternoon” Maralyn, Chris and Sue raised £220. Maralyn Bowen "Please find enclosed cheque for £100.55 for Ian's memorial fund. It is from Norman Evans M.B.E. Norman is well known in the Town as he sits in his wheelchair on the High street every day playing his accordion. All money given to him he gives to charities. He has just been awarded an M.B.E. for all his charity work. I was pleased to think he thought of CRY for this money this time." Maralyn Bowen A donation of £125 has been received from Huntsman PU, in memory of Ian.

in memory of vera camilla greenwood Mrs. Vera Camilla Greenwood deceased directed that "after the special bequests, any money that I leave to be given to any worthy charity". On the instructions of the executor, £4000 was donated to CRY.

In memory of Alex Roberts We have received a donation of £391.36 from Mr. & Mrs. P Roberts, which represents donations given in lieu of floral tributes in memory of their son Alex Roberts.

In memory of James Patterson A donation of £1095 has been received in memory of James Patterson. “The money was collected at the funeral of our son James. James died suddenly early on the morning of 2nd of September 2005 he was 28 years old and would have been 29 on the 11th November. He left a young wife and a baby daughter who was one year old a week after his death. Because there was no medical history of any serious illnesses, there had to be a post mortem that took some time and finally concluded that the cause of death was Cardiomyopathy. James was a very fit and active man. He played rugby regularly for The Campion Old Boys Club and played for The Campion School since the age of eleven right through until he left at eighteen. The day before he died he had been training as usual. Due to the suddenness of his death his wife and ourselves decided that CRY was the appropriate Charity to donate the sums collected and his pals at the rugby club have said they will be arranging a further fund raising event for CRY in memory of James later in the year.” Gill and Peter Patterson. Issue 41

Cardiac Risk in the Young

Our Fundraisers

in memory of Pete Reynolds A donation has been sent of £105. “Collected by friends (Jenny, Harry, Irene, Judy, Margaret) from Marks & Spencers when they went to a funeral, instead of flowers and collected from friends and colleagues also at Marks & Spencers just for Pete. Marks & Spencer Cribbs Causway, Bristol, have voted CRY, store charity of the year” Anne Reynolds We have received a donation of £200 in memory of Peter Reynolds. “This money was kindly raised by the parents of one of my best friends, who just wanted to do something positive for us. They held a charity breakfast morning at the company they own, and raised £127. Very generously, Mike (my friend’s father) ‘rounded’ this money up to £200 by digging into his own pocket. The company is a small one, based in Gloucestershire, called SWA” Rebecca Pring “Enclosed cheque for £264.63 raised by the Staff members at our store. Our Business Involvement Group used to have a budget to reward staff members who were nominated by staff or customers. We now have a new scheme in place but had our budget left which we in turn bought bottles of wine. We held a raffle with all these prizes and raised the above amount. As a store we have CRY as our store charity and are holding several events to raise as much money as possible. We intend to have a Christmas raffle with prizes that have been donated by members of staff” Mrs. Lyn Hacker Rebecca Pring has made a donation of £100 that was raised at her firework party held on November 5th.

in memory of Sebastian English Friends of Steph have been selling wristbands while on holiday at Trearddur Bay in Anglesey. The two families that made the collection at various sailing club events are: Nicky Earlam and her children Lou-bird, Willy & Freddie, Bev, Stanley and their children Venetia, Olivia and Sophia. “We had a family picnic on Saturday 10th September to remember Sebastian. We asked our friends to give a donation and I am delighted to send you the cheques” Demelza Short. Sebastian’s family donated £1550.00 Alison Cox was delighted to be invited to Lord Wandsworth College in Hook, Hampshire to receive a donation of £6271.40 raised by fundraising events carried out by the College last year and represents half of the funds that were shared between CRY and Sight Savers. “I am, at last, able to send you all the money raised by my daughters and friends at the Hydro Active 5km run in Hyde Park that they took part in, in September. They would like the money to be put in the Sebastian English Memorial Fund. He was my daughter Joanna’s special friend when they were tiny right through his too short life. The names of the people in the picture from top left to bottom right are:Juliet Keeble, Rosie Scott, Joanna Wootton, Abigail Pickard-Price, Laura Keeble, Lucy Wootton, Sarah Keeble and Clowie Stonely. It was an incredibly hot day and they all finished the course which was a great achievement as they are not regular runners. Total Amount enclosed is £400” Clare Wootton 28 |

Cardiac Risk in the Young

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Our Fundraisers

In memory of Daniel Casey “I lost my brother two months ago to ‘Sudden Adult Death Syndrome’ at the age of 32. Rather than giving flowers at the funeral, friends and family wanted to donate to a worthy cause. We felt that ‘CRY’ would be a very appropriate and worthy charity to donate to. Please therefore find enclosed donation, which I hope will go towards helping families like ours in the future” Miss Angela Casey. A donation of £565.40 was received.

In memory of Nic Swaysland arlier this year, we experienced the sudden death of a young colleague. It was very shocking to us all and absolutely devastating for her family. Her name was Nic Swaysland. She was a young Radiographer who was full of life, very professional at her job and was loved by everyone that knew her. She progressed very well within her career and had great potential for the future. She was also quite athletic as she played hockey at county level and was very competitive at it. She had planned a ski trip and was due to go away on the Saturday. She had a stomach upset on the Thursday and didn’t come into work on the Friday but was due to see her family for a meal before going away. When she didn’t show up for the meal, the family went round to her flat where she was found dead in her bed. I’m sure you have heard stories like this before but when you haven’t, you cannot believe it is possible. Initially we were all very confused. It is hard to believe she wasn’t just asleep or that nothing could be done for her. Then we couldn’t imagine how

painful it must have been for her family. Then came the questions How? When? Why? Sadness that she was on her own at the end of her short life. Many emotions came flooding through. I have never been to the funeral of a young person before and hope I don’t have to do it again. We have all been affected by Nic’s death and we will never forget her. It made all of us re-evaluate our own lives. I had already decided to walk the South Downs Way in June and while I watched the London Marathon (which was just after Nic’s death) I saw someone from CRY talking about the charity. At the time Nic’s death was just said to be unexplained. Listening to the person on the T.V. I realised this sudden death was what this person was describing. Having a heart condition and not being aware of it has mixed consequences. Not knowing is hard on the loved ones left behind, but had Nic known she would not have enjoyed her success at Hockey. I decided I wanted to do the walk for your charity. I was really touched especially by the people on the walk who sponsored me. Not many people had heard of the charity so hopefully I have helped to promote it as well. Most of the money I raised was from the people who worked with Nic. I have enclosed a cheque for £150, the money I raised in memory of Nic. I hope it will help you with all the good work you are doing. Keep up all your good work” Sue Chard

In memory of Jamie Bucknell Bishop Burton College, Beverley has held fundraising activities and raised £339.65 for CRY, Pauline Jolly very kindly represented CRY to collect the donation. “The money was raised by our AVCE Travel and Tourism students. For one of the units of their course, the students had to plan, carry out and evaluate an event with travel and tourism theme. The group of 11 students was split into 1 group of 5 and 1 group of 6. The group of 6 consisted of Charlene Watkinson, Rachael Bayliss, Holly Clark, Lucy Rozenbroek, Rebecca Piwinski and Gemma Harland who decided to organise a ‘UK Seaside Issue 41

Promotional Event’. The event took place on the 3rd February in the college sportshall. The students carried out a sponsored walk prior to the event to raise money to fund their activities. On the day of the event, the students operated a ‘Seaside

Information Stand’, they arranged for real donkeys to be present for ‘guess the name of the donkey’. There was a ‘Hook a Duck’, tombola, icecream and popcorn sales and many more activities with a ‘seaside theme’. The students could choose where the proceeds of the event went – the money could actually have been spent on a day out for the students or other activities but they decided to donate to charity. Charlene Watkinson had gone to school with Jamie Bucknell who had died from a Cardiac Arrest and the group agreed that the money would be donated to CRY.”

Cardiac Risk in the Young

Our Fundraisers

in memory of Simon Pangborn t gives me very great pleasure to enclose a cheque for £857.55, for Simon’s Memorial Fund. Back in June, we held a fun day at Edgbarrow Sports Centre, with our good friends at New Era Soccer School. The day consisted of various activities for children, including face painting, a bouncy castle, a raffle and refreshment stall. At 3.00 a soccer match was played between coaches and ex-professional players representing New Era, against a team of parents who had all responded to our request to ‘buy a place’ in their team. Amongst the ex-professionals who gave up their time for the cause were, Gary Waddock – ex QPR and Eire International, Tommy Langley – ex Chelsea and England B International, Justin Skinner – ex Fulham, Andy Freeman – ex Reading, and Ashley Bayes – ex Orient and England Youth Goal Keeper. A crowd of over 200 enjoyed a fiercely contested game which saw the coach/celebrity team run out 5-4 winners. The highlight was Eddie from CRY presenting Sean Faulkner with the trophy. The day was then topped off with a disco and auction, highlighted by a brilliant performance from live band ‘Joe Becket and Grooveline’. The day was a huge success with £857.55 raised for CRY. We know that Simon would be very proud of all the effort many of his family and good friends put in for his chosen charity. Although we all miss Simon very much his spirit lives on, and the day will become an annual event, and plans for next year are already under way! All of us involved feel a special affinity with CRY, and although it has taken a tragic and untimely loss of a very dear person, so many good things have come out of Simon making us aware of your worthwhile charity. Samantha Pangborn

Coaches & Ex Pro’s

Team Captains and Ref

Gillian and Alan Pangborn organised a Charity Car Treasure Hunt which set off from Frimley Lodge Park. After following the clues, the treasure hunters went to the Half Moon Pub in Windlesham where Surrey Heath Major Clr Stewart Stevnson handed out the prizes. “We are grateful to the local traders who gave prizes, everybody said what a lovely day it had CBS Furniture of Ascot, Berkshire has made a donation of £500 in memory of Simon Panborn. “It is our belief that the money we would have spent on corporate Christmas cards can be put to far better use

Eddie Farrow and winning captain

Parents

been and we were thrilled” Gill Pangborn The amount raised was £735. The day had been so popular that they hope to repeat it next year. A further donation of £100 has been received from Vanessa Tardiff, more than covering the cost of merchandise that she has requested for her event. in the voluntary sector. I hope that our donation can go some way to support the most valuable work that the charity carries out” Damian Cavanagh, Managing Director

In memory of David Bick “It will be our beloved son’s birthday in September. John and I, also our family and friends have given donations to CRY to commemorate this event. Please find enclosed cheques valued at £125” “It will be the tenth anniversary of David’s death on 23rd January 2006, the above amount has been contributed by John and I, plus members of our family.” John and Ursula Bick donated £130

In memory of Geoffrey Alan Smith

In memory of Edith Duck

Mrs. Pam Smith of Blaby, Leicester has donated, in lieu of flowers, £897.64 in memory of her late husband, Mr. Geoffrey Alan Smith.

A donation of £130 has been received by Mr Brian Duck in memory of his mother Mrs Edith Duck, for CRY.

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Our Fundraisers

in memory of Kevin Sayer “Well it’s a year ago when I last wrote to you when my son Colin (Forder) and his friend James (Marjoribanks) held a charity football match in memory of Colin’s friend Kevin and James’ friend Matt, this event has now taken place again (Sunday August 28th) with all their friends and families getting together to raise money for CRY and the Royal Marsden Hospital where Matt died of a rare form of cancer. We had a Tombola and a raffle and the football game with Colin’s Team of Kevin’s friends and James’ Team of Matt’s friends, this year it was a draw 1-1 and we had beautiful weather and a friend and I put on a buffet for everyone to enjoy afterwards. I am enclosing a cheque to go to The Kevin Sayer Fund for £260 and hope we can do the same next year” Mrs. S. Forder

In memory of Simon Cox “Simon’s dad Doug, rode the London to Brighton bike ride in June. He distributed leaflets on route and wore a CRY poster on his back, another cyclist spotted his poster and gave him £20. Simon’s brother Adam and his friends Ian King and Warwick Winter entered the London Triathlon in August for which they were sponsored. Simon’s brother Jason collected £290 towards the above event, giving us a grand total of £1010, which we are delighted to pass on.” Carole Cox

In memory of Marian Cox

In memory of Jonathon Hooper

A donation of £165 has been received in lieu of flowers from the funeral service of Mrs. Marian Cox.

Jenny Anthony completed the Hydro Active Women’s Challenge on Sunday 4th September 2005 and raised £207.

In memory of Therese Field “Enclosed are cheques totalling £1800. This money was raised for CRY by my dance school “Stargazers”. We put on a song and dance display at the Birchington Village Centre on Friday 15th July called “Summertime”. This was done in memory of my sister Therese. There were over 100 children involved in the show.” Tara Gore

In memory of Martyn Simpson Medical Direct Group , Stanmore, Middx. have made a donation of £250 in memory of Martyn. General Electric in Harrow wanted to raise money for a good cause. Someone in the office suggested CRY, in Memory of Martyn Simpson and as a result almost all the Department ‘GE Triathlon Team’ competed in the Hatch End Triathlon on 15th May 2005 and raised £636.

In memory of Tabitha Shapland Jean Shapland has raised £325, with £275 being from the sale of CRY Christmas Cards St. Columb Major Rotary Club have made a donation of £1250. Judie Street represented CRY at the presentation of the cheque and addressed the members on our behalf. St. Columb Major Rotary is only a small club with 28 members. They raised the funds through a duck race and a donkey derby, tourists helping to boost the funds. Issue 41

Cardiac Risk in the Young

Our Fundraisers

In memory of Laura Fox October 1st, The Kings Head in Woodbridge held a Caribbean Evening and raised £1500 for CRY. “Barry arranged a superb evening which included a Caribbean buffet and even a genuine steel band. Tickets were sold out a few weeks before the event and 120 people attended in total. Miranda and Lena were busy selling raffle tickets and eventually we sold out of them as well and had to hand write some!! With the bar staff donating their tips for the previous month, it really was an evening where everyone contributed. Thank you to everyone who helped out and special thanks to Barry for supplying us with a great evening.” Mark Fox A Dunk Tank was put to good use during the Suffolk Police Family Day, Mr. Robin Soames raised £213.24

In memory of Jamie Gault We have received a donation from Mr. & Mrs. N McKillop of £200 and a further £200 from Park McKillop & Co. of Ballymena, Co. Antrim in memory of Jamie. Margaret Gault is a member of Ballynure Women’s Institute, which is a small group of 20 members only, and have made a contribution to CRY of £350. Margaret Gault held two stalls in June and November 2005 and has sent us a donation of £500 raised from the sale of CRY merchandise and donations. Ballyeaston Vintage Tractor Group have donated £1250 to CRY. “This was raised from a Tractor Drive involving 96 vintage tractors driving for 35 miles. Unfortunately the weather was extremely wet so they were a sorry sight. Lots of people have received replies from our local M.P’s so the Postcard Campaign has been very successful in this part of the U.K.” Margaret Gault

In memory of Ian Merchant Barbara and Denis Merchant have sent the proceeds of their collection box, being £99.77 and they have rounded this up to £200.

Inmemoryof CharlotteWilliams Charlotte’s family and friends celebrate her birthday, 7th July, by holding an event in her memory. Charlotte died on 5th May 2002. Rob Thorn went to the event to hold a stall and help promote awareness of CRY. They have donated £800.

In memory of Julian Wort “Please find enclosed cheques for £710. The Inner Wheel Club of Frome held a Harvest Festival Service, and afterwards an Auction of the produce and gifts that were given, and they raised the above amount. Which is fantastic! Before the service I was asked to say a few words about CRY. The President Hazel Shaw, then told the congregation that although she did not know Julian, she knew a lot of my family, and when she became president she knew exactly which charity she would choose for her year in office, which I thought was lovely.” Shirley Wort Mr. Len Pearce has known Shirley and her family for many years and has kindly donated £200 to Julian’s memorial fund. Letter from Mr. Pearce to Shirley, “It was good to read of your great success so far and I applaud and congratulate you for your grand work.” Len Pearce. 32 |

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in memory of Anthony Child “Please find enclosed cheque for £778 which was raised by having a line dance in memory of our son Anthony Child (Budgie). We hope this will be the first of many fund raisers we will do for CRY.” Angie, Jack & Stephanie Child “We had a fund raising disco on the 20th November to mark the anniversary of our dear son Anthony John Child lovingly known by family and friends as “Budgie”. Budgie’s sister Stephanie and her friends organised the event with a disco and raffle and invited family and friends to the event to remember Budgie in a way he would have enjoyed. So with the raffle and sale of wrist bands and very kind donations we finally arrived at the grand sum of £722. Jack, Steph, her boys Cameron and Oliver and myself would like to take this opportunity to thank you for your support in 2005, we now know how important Alison’s advice to get us all to the London Heart Hospital was.” Angela Child

in memory of James Wood A two day regatta was held by Broxbourne Sailing Club in memory of James. James was a member of the 1st Broxbourne Scouts and he was a keen sailor. His friends are going to hold the James Wood Memorial Cup as an annual event in his honour. A donation of £200 has been made to CRY. Gill Wood raised a further £35.50 from the sale of merchandise. Broxbourne Tennis Club held a family Fun Day named ‘The James Wood Memorial Tournament’. Gill and Robert Wood have had a special trophy made for the winner of the tournament. The Club raised £352.09 and are hoping to make this an annual event. Gill Wood raised a further £17.50 from the sale of CRY merchandise.

in memory of Mark Pover Mr. Gerald Crossley, a director of Stalybridge Celtic F.C. Ltd., has completed the Blackpool 10k and raised £350 for CRY in memory of Mark Pover. Stalybridge Celtic F.C. Limited has made a donation of £300 in memory of Mark Pover. “This sum was raised by Mrs. Jenny Walker during a Stalybridge Celtic Junior’s Charity Night on behalf of her late husband, a former chairman of Junior Section” Pat Beswick, Secretary, Junior Section

in memory of Alex Buckler “On the 17th September we held a concert in memory of Alex, An Evening of Song. The Concert was held at Kings School, Bruton, which Alex attended. Throughout our ordeal they have been very supportive. Rose and Edward were great friends of Alex in his year and they both sung solos and a duet together. Nathan, from New Zealand, was living with us when Alex died and plays the classical guitar. All of them were really keen to take part and put a huge amount of work in to give wonderful performances. So it was very special to us that these three young people took part. The two choirs, The Cider Singers and The Quorum are part of a larger choir. The Stanchester Quire, which specialize in traditional carols and folk songs from the West Country. Charles, Alex’s father, sings in the Cider Singers. It was a wonderful evening and once again so many of our friends joined us to make it such a success. I am enclosing cheques which total £1550 which we have collected as a result of the evening.” Rosalind Buckler. A further donation of £100 from the concert fund raising has been received. “Once a year on the farm the local archery club, which my father started many years ago, hold a shoot. This year they held a raffle of which all the proceeds they have donated to CRY and I enclose a cheque for £225” Ros Buckler. Issue 41

Cardiac Risk in the Young

Our Fundraisers

In memory of Ben Thorn Jane Hipkin held a fund raising event at the Half Brick Public House in Worthing. They had a live band, raffle and auction. Jane approached the Argyll Children’s Fund in Worthing who kindly donated £200 to buy prizes for the Auction. The evening was a great success and people were very generous, the total raised was £955. On August Bank Holiday Lee Paulson successfully jumped a Rover 216 Sprint over 9 other cars to help raise awareness of CRY and to raise money for CRY in memory of Ben Thorn. Lee has raised £85 for CRY

In memory of James Wilson “The employees of Asda Distribution Centre Washington held a charity night supporting 4 charities and they asked if they could use CRY in memory of James. I was delighted. They raised £500 and Asda Company gave a cheque also for £300.” Ann Wilson

In memory of Andrew Parr “Enclosed please find £100 donation from the MEET TO EAT CAFÉ. We hold our weekly meet to eat lunch café at Kirkby Lonsdale Methodist Church once a month we will be giving local and national charities a donation. You have been chosen this month. We hope it will help in some small way.” Mrs. Susan Auger Gemma Abinett, Andrew’s fiancé, has raised £403 through sponsorship after her successful completion of the Hydro Active Women’s Challenge. “Please find enclosed a cheque in the sum of £731 raised through a collection held at Preston North End Football Club on Saturday 29th October. Sixteen of Andrew’s friends helped us collect before the match and during half-time they were then allowed to stay and watch the match which they enjoyed despite being a nil-nil draw! The heart shaped costume was a talking point. They allowed me to go onto the pitch before the match and walk around with Preston North End’s mascot – the Deepdale Duck.” Ruth Lowe Ruth Lowe and friends, namely: Mrs. Rosemary Cannon and Anne, Mrs. Debbie Talbot and Gemma Talbot, Mrs. Kath Cope, Miss Ruth Cope, and Mrs. Karen Gacesa all took part in the Hydro Active Women’s Challenge. “It was the first time any of us had taken part in a ‘fun run’ but we thoroughly enjoyed it. The weather was sunny which helped, the location was good (Sefton Park Liverpool) and the atmosphere was great. We spotted another group of runners running for CRY. We had a picnic lunch in the park followed by a game of rounders/baseball! Needless to say we were all stiff the day after” Ruth Lowe. Ruth and her Team raised £1472.50

In memory of Nathan Jennings

In memory of Ben Carter

“Yet another year has passed since we lost our son Nathan and a chance for all his friends to get together and remember him at the Mid Kent Golf Charity Day in support of CRY. Last year we had an entry of 75, this year an entry of 115. This fantastic support raised £1800. Like last year we are going to donate £100 to the Captains chosen charity, the local hospice. Just a small thank you to him and the club for their support of ‘Nathan’s Day’ so that leaves £1700 to CRY. We hope everything is OK with yourself and all the wonderful helpers at CRY. Perhaps when the loss of our beloved son eventually becomes less painful we will be able to help even more. It is only 4 years, and still feels like yesterday” Dave and Jenny Jennings

“Please find enclosed a number of cheques to the value of £500, which was raised through a fund raising event in honour and memory of our dear son, Ben, who died in March of this year due to an undetected heart defect. A tabletop sale, tombola and raffle were held at our home on what would have been Ben’s 15th Birthday, October 31st. Although the day was very traumatic, we were able to raise the money for Ben’s memorial fund, and towards your continuing good work at CRY. Ben would have been proud that his life and memory was helping to save others. Our good wishes to you all for Christmas and the New Year and many thanks for your support throughout this horrendous time.” Joanne Carter and Family

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Our Fundraisers

In memory of lewis marsh

ill Weston has sent in a cheque for £2,500. This money was raised at the Sandhurst Town Boys and Girls Football Club in memory of Lewis Marsh, some of which comes from a Football tournament made up of donations and a tombola.

“Sandhurst Town Boys and Girls Football Club (STBGFC) recently donated £2500 to help fund the testing of local youngsters for heart defects by the Cardiac Risk in the Young charity (CRY). The money was raised at the club’s annual pre-season tournament which is dedicated to the memory of Lewis Marsh who played for STBGFC before he tragically died from an undetected heart complaint at the age of 14 years old. Over the past 7 years STBGFC have donated in excess of £30,000 to the Lewis Marsh Fund to help buy heart scanners and test over 500 youngsters. Pictured receiving the cheque (below) from Chairman Peter Morris with members of the club is Gill Weston, Lewis’ mother. STBGFC is an F.A. Charter Development Club and provides football in Sandhurst for over 400 youngsters between the ages of 5 and 18” Ian O’Neil STBGFC When Lewis Marsh died in May 1998 it sent shock waves around the community. Sandhurst has grown from the small village it once was but it has retained the community spirit. Lewis had played football for the team my husband managed at the local football club, he played tennis, had gone to a local primary school so he had touched and met many people in his life. At his funeral I read about CRY on the back of the service sheet. I was a mother of three sporting boys and was shocked by what I read. I talked to a family friend who was also the Chairman of the football club. We both felt something should be done and with the blessing of the Marsh family had a meeting with Alison Cox. The Lewis Marsh Fund began. This is of course history now that has been told many times. The Fund took off in a big way – the Mayor of Bracknell Forest made it his charity of the year. We quickly raised enough money to fund an on going ECG programme in the area. But what has been amazing has been the continual support of the football club. Every year they stage a tournament at the beginning of the season. The Lewis Marsh Friendly Tournament. Not a 5-side-tournament but for complete teams depending on their age groups. It is incredibly popular and each year hundreds of young people come together in the name of sport. This year will be the 9th tournament. The work involved in bringing this together is incredible. It has evolved from paper pushing to the internet – the computer has taken some of the hard work away but not all. Teams are turned away such is its popularity. Conduct rules are strict and the atmosphere is wonderful – everyone together to enjoy their sport. Myself and the Lewis Marsh Team are there with our tombola stall and information on CRY – but most importantly with the ECG machines – testing youngsters. We do not charge individuals – we use the money donated to us from the tournament. This club has raised over £30,000 for the fund and ultimately CRY. It is an amazing amount. Since 1998 the Fund has raised over £93,000 for CRY. We have purchased three ECG machines; the portable Echo machine used at the CRY cardiology unit at Northwick; and a defibrillator for the CRY mobile screening unit. Plus – tested over 600 young people. So thank you Sandhurst Town Boys and Girls Football Club for you help and support and commitment to CRY. We hope we will be able to continue to test at the tournament for many more years. We do not restrict our ECG testing to young people competing in the tournament – we make it available to everyone – however we do ask for a donation, if possible, from those not involved. So please do not hesitate to contact either myself or the club if you would like to either enter the tournament or have an ECG test. The club website is www.stbgfc.co.uk or myself sally.reid@virgin.net Sally Reid Lewis Marsh Fund Manager

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Cardiac Risk in the Young

Our Fundraisers

In memory of Philip Abraham ary Abraham received this letter from the Concorde Club, Eastleigh, Hants. “We are delighted to enclose a cheque for £1750 which we have pleasure in donating to your charity from the proceeds of our Charity Pantomime Fund. Good luck with your continued fund-raising and trust that our donation will help with your funds.” Cole Mathieson

“I thought you would like to see this letter as it lifted my heart when I first heard the story” “The family I have known for some years and they knew both my boys growing up” “I wonder if it could go in the update to tell others our hard work does bring rewards (sometimes) Mary Abraham.” Dear Mary, I am writing to say that when we received your “thank you letter to supporters” and read that you have presented both the Bitterne Health Centre and West End Surgeries with the top of the range ECG machine, we did not think how this would affect us personally. Tom has always been very fit, in fact a regular attender at the Bitterne Sports Centre (working out on the machines), belongs to two bowls clubs, does all the work in our huge garden, as well as all the shopping, ironing etc. as I have MS. On Monday 21 November Tom had spent the afternoon in a bowls match, winning 36 to 10. In the evening, as I was due for a check up when my blood pressure would be assessed, I decided to use our home machine and on a whim said I would measure Tom’s BP and pulse. To my surprise his pulse rate was only 38. At the time I thought this was probably due to

thyroid inactivity as Tom has a goitre and suggested he contacted the surgery the next morning to make an appointment. This he did and unusually for our practice, managed to see the GP at 10 a.m. I thought no more of this as Tom appeared in perfect health, and was surprised when Tom returned to tell me he was to be admitted immediately to the Coronary Care Unit. Apparently on seeing the GP he had an ECG which showed he had a second stage heart block and he needed a pacemaker fitted as an emergency. On admission to the Coronary Care Unit he was assessed and it was decided to go ahead with the operation that day. (However, due to pressure of work this operation was performed on Wednesday). I am pleased to tell you that Tom is recovering well and will soon resume his normal activities. The reason I am writing this letter is that if Tom had not been so fortunate to be able to have the ECG carried out early on Tuesday morning at the GP’s surgery, there might have been a different ending to this story. The GP rang me on Tuesday evening to ask how thing were going and said she was surprised that Tom had shown no symptoms, usually patients at his stage would fall down while out walking etc., and the consultant at the hospital was amazed that there had been no warning symptoms to alert Tom to seek medical advice. We are therefore heartily grateful to you for your fund raising efforts in memory of Philip and presenting the ECG machine to our surgery, as without this there would have been a delay in getting the ECG carried out which may well have led to a very different ending to this story.” Frances.

In memory of Adam Donnelly "On Saturday, 28th May a group of people did a sponsored 75-mile bike ride - finishing at the Queens Arms pub in Fulham. Some people did the bike ride in tandem but quite a few completed the whole 75 miles on their own - among them our very special friends Eric and Carl Adamson who raised £765 between them for CRY. - well done lads! The rest of the team - Caron, Tony, Mandy, Joey and Bob raised a staggering £1,791 between them which is fantastic - thanks guys! So total raised was £2,556. Thanks to all who took part - it really was a fantastic amount of money raised" Julie Donnelly Julie Donnelly has raised £110 from the sale of CRY merchandise, she has found that the wrist-bands and pens are very popular. “Please find enclosed cheques totalling £324.50 raised for CRY in the memory of Adam Donnelly by Sandra and Gabby Clark who took part in the Hydro Active Women’s Challenge in Hyde Park on September 4th.” Sandra Clark

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Our Fundraisers

In memory of Alex Roberts

In memory of Daniel Pollins

We have received a donation of £391.36 from Mr. & Mrs. P Roberts, which represents donations given in lieu of floral tributes in memory of their son Alex Roberts.

Mr. & Mrs. A Pollins requested that donations given in lieu of floral tributes in memory of their son Daniel Pollins, be given to CRY. A donation of £821 has been received.

In memory of Aaron Lundy

In memory of Huw Lewis

A donation of £6000, raised at a race day at Down Royal has been received from Honorary Presidents of the Perennial RFC/Woodenspoon Charity, namely Willie John McBride MBE and Dr. Jack Kayle OBE.

“Please find enclosed a donation of £1500 raised by the friends of the late Huw Lewis” Paul Mansbridge

In memory of Andy Gard We have received £1015 from Caroline Gard representing funds from the October ECG testing T.D.H Andrews Memorial Trust have made a donation to CRY of £200 for the Colchester Screening Project. A donation of £100 has been received from Caxtons Bookshop, Frinton-on-Sea where Julie’s book launch was held. In Memory of Mrs Dorothy Wilde Mrs. Wilde’s family and friends have made a donation of £260 in lieu of floral tributes. They have requested that this donation be allocated to the Andy Gard Memorial Fund.

In memory of Jonathan Leigh

In memory of Richard Whitehead

The Leigh Family have been busy selling CRY wristbands and have raised £390 so far.

“Please find enclosed a donation of £600 to go to the ‘Richard Whitehead’ Memorial Fund. My partner “Ritch” was a truly loved person, and myself, family and friends of his held a charity evening in memory of his death 1 year on. We put on a ‘Miss Brindley’ (drag queen contest) which 14 of his good friends took part in, and his favourite local band performed a brilliant set to finish it off! I hope this helps others as you have done for me and our family. Thank you so much.” Emma Goodwin.

in memory of David Harry Jayson Perfect, Manager of the George IV Public House and Darren Castle competed in the London Triathlon and raised £300 for CRY.

In memory of Claire Dee Shapland “Following the Coroners report a week ago the Newbury Weekly News did a front page article on Claire’s death, included was details on CRY’s post card campaign. We have three locations where we have post cards on display, Newbury Rugby Club, Falkland Surgery and the Laundry Basket. We have used an A4 display rack with text from your colour brochure which stands out well. Following the Newbury Weekly News article we received a cheque for £100 from Analog Devices, who read the article on CRY.” Nicholas Dee Shapland.

In memory of Simon Gibson “ I completed a solo cycle ride from Land’s End to John O’Groats, April – May this year, covering 1127 miles in three weeks. I gained sponsorship for the event for your charity both by cash and online at justgiving.com. A school friend of mine died 2 ½ years ago from a heart-related problem and CRY was a charity chosen by his family to support, and I wished to continue this support.” Nicola Thompson. Nicola raised £1123.47

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Our Fundraisers

In memory of Gareth McDonald Claire raised £205.35 by holding a sale of CRY Christmas cards. Johanna has also been selling our Christmas Cards and has raised £120.85. Her employees, Clifford Chance in London have made a match giving donation of £121. “I have had a donation from Mrs. Shirley Herrington of £200 for the Gareth McDonald Memorial Fund. She is a very kind and generous lady. Shirley’s husband died of a defect of the heart a few years ago. She has now come to live next door with her daughter Kim who over the past few years has been a great support to me and my family.” “On Monday the 5th December I held a quiz and auction night at our local we raised £1,600 to go into Gareth’s fund. It was a great night everybody enjoyed themselves. Special praise for the Landlords Gary and Sue Corpe of The Old Cross Inn Public House, Rumney, Cardiff, they worked very hard to make this a very successful night, they were tremendous. Could you also send a special thanks to my neighbour Mrs. Kim Court. She donated a lot of the prizes and collected all the money on the night. Without her help I could not have raised so much money she is a very special person a fantastic neighbour.” Diane McDonald Mrs. Margaret Mathias has requested that the donations received at her late husband’s funeral, £420, be donated to CRY and be allocated to the Gareth McDonald Memorial Fund which is raising funds for equipment in Wales.

In memory of Leigh Graham Please find enclosed cheques for £3,625. This was raised for CRY in memory of our Daughter and sister, Leigh, who died on 1st August 2002. She went to bed and just didn’t waken up. On her death certificate it reads “Presumed Cardiac Arrhythmia”. We were, and still are devastated by her death, and for that reason, we want to help stop this trauma and distress happening to some Colin Graham(Father of Leigh), Suzzanne Andy Dempster- On behalf of ‘Heawene Brim’ other family. We held a “Party in the Pub” (Leigh Sneddon (Swimmer), Laney Graham(Sister of would have loved that) and our friend Suzzanne Leigh), Val Graham, (Mother of Leigh) did a sponsored swim by swimming the breadth of the River Tay, approx. one and a half miles. The amount raised £2,375. The cheque for £1000 was given to us by our friend Andy Dempster and his workmates who are on an oil rig in the North Sea. They were only too happy to help after reading the leaflets given to them by Andy. The cheque for £250 was raised by my work mates at a quiz night (Boots the Chemist Dundee). I want to thank you for the help you have given me and my family – just knowing that by logging on to your website, we are not alone.” Val, Colin and Laney Graham.

In memory of James Jackson A draw was held at Barclays Bank to see which charity would benefit from the ‘Africa’s Highest Mountain’ event which was being attempted by an employee Matt Charrett. James’ Aunty, Joanne Morgan, put forward CRY’s name and won. “The climb took 8 days, weather was fine pretty much every day apart from the final ascent where it proceeded to snow and took us 11 hrs to reach the top, leaving 11pm at night getting to the summit at 9.30am the next morning! I’m the one in the red jacket!” Matt Charrett. Matt raised £1085.26. Barclays Bank have made a donation of £750 from their Community Programme matched funding scheme.

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Our Fundraisers

In memory of Mike Scott The North York Moors National Park held their annual NAFF RAFF and have donated £160. “Please thank the General Office but give special mention to Mary, Donna, Michelle, Clara and Toni as these are the ladies who organise this raffle and put a lot of hard work into it.” Marje Scott

In memory of Jodie Hanson Kyla Hanson held a sponsored Rowathon in memory of her sister Jodie, on 28th October at Odyssey Gym, Market Weighton. She did 26.39 miles in 2 hours, 53 minutes and 39 secs. Kyla raised £500 for CRY.

In memory of Richard Mason “Each year at The Angle Ring Co. Ltd. we make a donation to a charity instead of sending each other Christmas cards. This year we have chosen CRY. My son Richard Mason died on 13th August 2005 of congestive cardiomyophathy. Richard was 31 years old. He married Laurie in September 2004 and everything in his life was going well. In August they went on holiday to our caravan in Wales, returned home on the 13th. During the evening Richard had what Laurie thought was a choking fit, paramedics and A & E worked on Richard but to no avail.” Val Mason

In memory of Dean Henderson We have received a donation of £300 from Romag in Co. Durham who held a raffle to raise funds in memory of Dean Henderson who passed away on 03/08/05. “My son, Dean Henderson was 15 years old and was diagnosed with Hypertrophic cardiomyopathy at the age of 10. He was monitored by doctors and took medication but he collapsed and could not be revived despite his sister and then paramedics fighting extremely hard for his life. We were told that this condition can bring on sudden death at any time but of course we hoped and prayed that as he was being cared for he would live to be a good deal older than his young 15 years. Dean’s sudden death has shattered our lives. It is

kind of other people to support us by holding events like this raffle so that we can pass on the donated money to charity hoping that conditions like Dean’s will not only be detected in young children but hopefully with research we may find either a cure or better medication to help benefit those with heart conditions. This is why I chose CRY to donate this money to as I am aware that you are continually trying to make people aware of heart conditions in the young and also researching. The name of the business my husband works for is Romag at Leadgate Industrial Estate, Consett, Co Durham and it is the kind people in this factory that raised the £300.00 for Dean.“ Deborah & David Anderson

In memory of John Markham We have received a donation of £100 from Mr. & Mrs. Markham in memory of John Markham.

In memory of Craig Johansen

In memory of Shaun Palmer

“Please find enclosed a cheque for £300 towards CRY’s fundraising. You may remember that I raised £11,000 in 2004 running the London Marathon for CRY, in memory of Craig Johansen who died unexpectedly from a cardiac related problem. I hope to make further donations in the future to support your good work.”

“Please find enclosed a cheque for £293 to be given to the Shaun Palmer Memorial Fund. £258 of this was raised by Gala Bingo who held a couple of games for CRY in memory of Shaun, as this is where my sister goes and who organised this event. The remainder of the money was raised by ourselves and family and friends putting odd bits and bobs in our swear box.” Mandy Palmer

A donation has been received from Mr Silsby of £125 in memory of Craig Johansen who died on 14th September 2003.

In memory of Angela Colligan “This year my employer, LNC Property Group, has decided to donate a sum to charity instead of Christmas cards.They have given me the opportunity to choose the charity and as Angela Colligan was my niece I have pleasure in enclosing a cheque for £750 towards the Angela Colligan Memorial Fund.” Morag Parker.

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Cardiac Risk in the Young

Our Fundraisers

In memory of Jenny Luke We have received donations totalling £988.22 “These are donations sent to us when my wife Jenny died very suddenly recently. Jenny and I started taking an interest in CRY in 1994-95 when our daughter Helen Luke died on November 24th 1994 of ‘Sudden Death Syndrome’. Jenny’s death was just 5 days short of the 11th Anniversary of Helen’s death. Helen was a member of the National Volleyball squad and a P.E. teacher at Brayton High School, when she died. I wish you the very best in your work” Fred Luke. A further donation of £100 has been received, in memory of Jennifer Luke, from the Gym Club where Fred Luke works.

In memory of Duncan Mulholland “Please find enclosed a cheque for the sum of £100 donated in memory of Duncan, who was a valuable member of our temporary team in London. He is greatly missed. I wish you every success in your research” Joy Nicholson. Divisional Manager. Brook Street (UK) Ltd.

Im Memory of Jane Allan One of the parents at the ‘Leap Frog Day Nursery’ in Oakwood, Derby nominated CRY and the nursery have made a donation of £600. Ursula and John Bick represented CRY and had an enjoyable time at the nursery where they were made to feel very welcome. The children were aged from 0-5 years.

In memory of John Marshall

In memory of Liam Beeson The Dove Public House at Leicester have held a fund raising night and raised £1100 in memory of Liam Beeson.

In memory of Stuart Chesnais We have received a donation of £1650. “These have been donated by friends and family of Stuart Anthony Chesnais (my brother) who died suddenly at the age of 29 years in June 2005.” Michelle Benetar

The staff at Durley Hall Hotel & Spa have yet again chosen CRY as their Charity to support during 2005 and have sent a donation of £486

In memory of Ralph Rodwell Mrs. Jan Rodwell has donated £580 which was raised in lieu of flowers at the funeral of her husband Mr. Ralph Rodwell.

In memory of Dawn & Nadia Tomlinson Diane and Chris Tomlinson have sent a donation of £250 in memory of Dawn and Nadia.

in memory of Matthew Moody

in memory of Steve Tanner

“I recently did a sponsored haircut at the Station. Please find enclosed a cheque for £350 in memory of Matthew Moody.” Leon Moody.

The Steve Tanner Shield Fund Raising Event was held at the Folkstone Sports Centre on the 29th November 2004 and £816.50 has been donated to CRY.

In memory of Sarah Johnson Switch & Crossings Renewals, Carillion Plc have given a donation to CRY of £1000. “The Safety Action Group has been set up by the S & C Renewals and has been in operation for over two years. The Group have adopted SHARE scheme as a way of encouraging safer working alongside raising money for charities such as yourselves. Cardiac Risk in the Young was nominated during our Monthly Safety Action Group meeting by one of the Project Supervisor’s John Herron. Mr. Herron has been instrumental in the running of the Group and it is through his commitment to safety, that this donation has been made.” Miss. C.E. Beresford, Safety, Environment & Quality Engineer. 40 |

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Our Fundraisers

In memory of Levon Morland Management and Customers of the Mason’s Arms Public House in West Rainton have made a donation to CRY of £462.60. United Utilities PLC Warrington has made a donation of £250 to CRY. “Brian Dobson, an employee of United Utilities, raised £766 by taking part in the Vitruvian Half Ironman Triathlon, and applied through the company scheme to match the amount raised” Pat Houghton Community Partnership Assistant. In total Brian raised £1036 from his sponsorship. A donation of £400 has been received from Fencehouses & District Ladies Darts League, in memory of Levon. The CRY North Fund has received a donation of £200 from Amicus members in the Darlington and Middlesrough area. The cheque is made from AEEU Retired Members Outing Fund (AEEU being one of the component member organisations of Amicus). The Morland Family have made a donation of £10,000 (including the amount of £2,650 raised by Sandra’s walk). Their annual charity event was held on the 28th October. Alison Cox was delighted to be there and had a very enjoyable evening. Part of this donation (£10,000) is to support our research fellow studies with Dr Sandeep Basavarajaiah.

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Cardiac Risk in the Young

The 9th 'H' Howard Jennings CRY Memorial Golf Trophy

A donation of £2643 has been raised at the Howard Jennings CRY Memorial Trophy and Lloyds TSB have made a donation of £400 making a grand total of £3043.

Jazmine and Lili Jai Murphy, “All Smiles”

Winner 2005 Pat Furlong

Howard Jennings

Computacenter Team

A drop of rain never puts these old ‘uns off

Becker (UK) Ltd Team 1

T h e

Jaz, Ryan and Kieren

David Anderson who gave a set of Calloway clubs to be auctioned

Becker (UK) Ltd Team 2

A t l a s

C o p c o

Roxanne Master, Ladies Winner

Bob, Terry, Lee and Ray

Ali and David Gordon with Tom Goome

Roxanne Masters and her team

T e a m

The tournament was held on the 18th September 2005. This years event (2006) will be held on Sunday 3rd September If you would like to participate in this event, please contact the CRY office

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Our Fundraisers

The Wycliffe Surgery

In memory of Chad Loveday

The Wycliffe Surgery, Dr. John Biggs, Dr. Julia Beresford, Dr.Gilliam Eadie and Dr.Raj Patel have made a donation of £167 to CRY.

We have received a donation from Debbie Loveday of £200 in memory of Chad.

In memory of Robert Lamplough “I raised £2500 in February this year by organising a concert and one of the sponsors has amazingly and very generously donated another £500. I am sure they realise what a fantastic and worthy cause CRY is. I hope this money will help the invaluable work you all do” Alex Clayton. The Mercers’ Company has made a donation of £500.

In memory of Sarah James “I have pleasure in enclosing cheques to the value of £500, sent to you on behalf of The Sarah James Memorial Fund. This is from the first of many fund raising events I am organising as chairperson of this fund, named after my sister, who died on 2nd June 2003 from ARVC. She was just 23 years old. The money was raised by having a fun night, including a disco, buffet, children’s tombola, hook a duck, and a large raffle. The raffle was made up of prizes donated by local businesses who were all most generous and to whom we offer our grateful thanks. My cousin Michelle Hindle, who like my mother, and myself now has an ICD in situ, has raised awareness of our cause in her workplace, Barclays PLC. They have kindly offered to match this amount. The night itself went very well and all who attended enjoyed themselves. The venue for the night was Parley Sports and Social Club, who allowed the use of the room for a reduced rate, and this is where we will have the Christmas fundraiser on 10th December. Their kindness and support for our fundraising is also gratefully appreciated. Sarah would have approved of these disco events, as she was a keen club goer, enjoying the nightlife on offer here in Bournemouth. She had recently graduated from Bournemouth University with an Advanced Diploma in Midwifery, and started work at Bournemouth Maternity Unit in the March preceding her death. She was a popular and fun person who has now had a wing at the maternity unit dedicated to her memory. I could write reams about my sister but it is summed up on one sentence. I love her and miss her dreadfully. My family has been torn apart, but united in grief we are as strong as ever. Sarah has not gone, she is waiting for us somewhere” Katherine Condon

In Memory of Niall MacLennan We have received a donation of £100 from Christopher Staples. “I recently attended the funeral of Niall, a close family friend, following his tragic death in Arizona. His brother Lorn raised the awareness of your organisation at the funeral and the shocking statistics of undiagnosed heart conditions in young people like Niall. My own experience was in 1970 when my lifelong friend Leslie Sherwood died aged 28 in similar circumstances. We had been at school and university together and he was to have been best man at my wedding and was tragically dead when we came back from honeymoon. Like Niall he was a talented achiever.” Christoper Staples A donation of £1565 has been received from Global Capital Markets Group, PriceWaterhouseCoopers. A further donation of £500 has been received from PriceWaterhouse Coopers LLP. I have recently found that the firm operates a Matching Giving programme and have matched the amount we raised up tp £250 On November 13, 2005, Niall passed away at only 30 years of age. He had been in a coma for one week after collapsing during a Rugby match. Subsequently, Niall was diagnosed with having a rare and undetected heart condition known as Wolff-Parkinson-White (WPW) Syndrome. Family and friends have made donations to CRY amounting to £2665, and donations in excess of £21,487.67 have been received via the Justgiving Niall MacLennan Memorial Foundation webpage.

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Our Fundraisers

West Midlands ECG Fund Mrs. Sandra Pearce has donated £1000 towards the West Midlands ECG Fund, in memory of her daughter Jenny Pearce. A further £125 has been received towards the West Midlands ECG Fund. This was raised by the NORFS at the Clarence Hotel, Tenby. Our thanks to Heather and Staff for all their help, and to Pat for organising the prizes and her continued support. Ellen Strong of The Welconstruct Community Fund have sent their annual donation, this year CRY received £200. A donation of £230 has been received from Ray and Jacqueline Wilson for the West Midlands ECG Fund and in memory of their daughter Kay. This was raised at the Whiteman Summer Dance. “I am pleased to send a donation of £200 on behalf of Coleshill and District Ladies Circle to CRY. I hope this will help your fundraising target. As a local charity-led organisation, we fundraise in the local Coleshill and district area and would always be willing to hear about your events.” Sue Sharp Chairman “The Lord Mayor of Kidderminster, Peter Dyke, opened the 7th Annual Weary Traveller Bowling Day in bright sunshine at 1pm on Sunday 28th August. The Mayor was very interested in the CRY campaign and, along with his chauffeur, took away 25 CRY postcards to give to their work colleagues. The event was bathed in sunshine throughout, and although there did not appear to be as many people present as last year, the day raised a magnificent £1400 for CRY. Kath's bottle behind the bar contained £382; Mick Billion's 'Head Shave' raised £200; and he also organised the auction which raised a further £130. Lorraine, with helpers, ran the raffle, whilst Pauline was on the barbecue - not literally, I must add! Tony with the bowling, and my granddaughter Catherine and her new friend Rhian on the balloons, also helped to swell the record fundraising figure. The £1400 raised is going towards the West Midlands ECG testing program which we hope to start in the new year in memory of Kay Wilson, 18; Jenny Pearce, 19; Alison Linforth, 16; Andrew Ball, 16; and many many more.” Roy Ball Father Christmas has raised £300 for CRY in the guise of Allan Weavin from Quinton, Birmingham. “Please accept £160 which were donations made on the death of my husband Derek who died 8th February 2006. These were made in memory of my son, Stuart, who died 8th December 1993 at 23, his death was put down to cardiomyopathy. Also £100 was raised by The Green Man Harbour, when they raffled a large teddy. I hope you can put to some use.” M. Bellett (Mrs) Other Fundraisers included: M/s Lynn Bluecoat School John & Eve

£50 £435

Sandra Disco John & Ursula

£612 £1000

A total of £5812.00

West Postacard Campaign Mr. G. Browne, Managing Director of Becker (Sliding Partitions) Limited of Watford, Herts gave £500 as sponsorship for our West Postcard Campaign.

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Our Fundraisers

In memory of Oliver Montague

iers and Keri Montague have forwarded a donation of £500. “This money has been kindly donated by the committee of the Yarlington Fringe Festival in memory of our son, Oliver Montague, who died of Long QT. Oliver was diagnosed with Long QT at 3 weeks old, and

although being given beta blockers, Oliver died at the age of 8½ months on 27th January 2005. Results from genetic tests carried out after his death showed that he had LQT3, which is unaffected by beta blockers. When we found out about his condition we were both determined that Ollie should be able to get out and experience what life has to offer. He enjoyed going out to parent and toddler group, doing Music with Mummy classes and spending time outside in the countryside. Riding in his carrier, he was even able to accompany us beating on several shooting days. Providing he was getting out and meeting people (and having plenty to eat!) he was very happy. Oliver always had a huge smile and a flash of his big blue eyes ready for anyone he met, and his smile melted hearts. He is much loved and will always be missed. Oliver is buried at the Church in Yarlington, a small village near Wincanton in Somerset, where a Fringe Festival was held over the May Day bank holiday weekend. This was a weekend of live music, workshops (including West Side Story Musical and Be a Stand Up Comic, with Simon Day of The TV Fast Show) Willow Weaving, Circus Skills, a Children’s Activity Tent, Films, Art Exhibition and more, including the obligatory Beer Festival! The Weekend was a resounding success (hopefully to be repeated in future years) both in terms of enjoyment had and money raised. The Fringe Festival Committee have kindly donated £500 to CRY in memory of Oliver, as the Church (and therefore Oliver) was in the centre of the weekend’s activities.” Piers and Keri Montague

“On 10th September 2004 a charity ‘End of Summer’ Ball was organised by the North Cadbury Parent and Toddler Group in memory of Oliver Montague who died of Long QT at 8½ months old. Oliver was a regular at the toddler group and his death hit the whole community hard. We wanted to do something to raise money for CRY, and to celebrate Oliver’s life. Organising a ball also gave us the opportunity to get dressed up and enjoy ourselves. The amount of money raised can be attributed to the generosity of local people. The ball was held in a marquee on the lawn of North Cadbury court by kind permission of the owner, giving the whole event a very special atmosphere. The marquee was erected by members of the North Cadbury Parent and Toddler Group and MLAN Engineering, who also supplied all the lighting and electrics free of charge. Wilts Electrical Wholesalers sponsored the event by paying for the generator and other electrical items. The bar was provided free of charge by The Queens Arms at Corton Denham who gave all the profits to CRY. An auction and raffle were held during the evening. The many magnificent donations including lots from EasyJet, the Royal Navy and Westland Helicopters were matched by some very generous bidding from the floor, raising a substantial amount. The whole event raised £7,150 for CRY, which we would like put in Oliver Montague’s Memorial Fund. It was a real credit to all those who worked so hard that we were able to pull off such an event with flair and style.” Keri Montague, On behalf of the North Cadbury Parent and Toddler Group

In Memory of Jane Allen In June 2005 Richard Hinkley competed in the Lowe Alpine Mountain Marathon and raised £1193.05 for CRY. This is a two-day mountain orienteering competition in a high mountain region of the Scottish Highlands with an overnight camp at a remote location. Teams run in pairs and carry everything to sustain themselves for 36 hours. The C-course (in which Richard competed) totals approximately 25-30 miles with around 6,500 feet of ascent/descent.

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Core Fundraisers

MORI Survey

Lodge Southern Light No.114

“In connection with a recent MORI survey among fund managers, we invited respondents to select a charity to which MORI could made a donation. A respondent requested that we make a contribution to CRY. As such, please find enclosed a cheque for £100 on behalf of: Jaime Forbes-Wilson.” Roger Stubbs, Deputy Managing Director.

“On behalf of the Worshipful Master, Officers and Brethren of Lodge Southern Light No. 114 (Order of Women Freemasons) would you please accept this cheque for £1000. This sum has been raised by our members during the past 12 months and it was agreed that your Charity should benefit from the monies raised. It was felt that the work you do is invaluable and we hope that this donation will help in some way.” Mrs. A. Jarvis – Secretary.

Yateley Manor

Golf Competition

”Last September we decided to support CRY as one of our School Charities of the year. I am pleased to enclose our cheque for £1,211.71” Yateley Manor, Simon Head (Pastoral Deputy Head) A further £76.77 has been sent raised by parents from the sale of second hand school uniform.

“On Friday 20th May 2005 I held a Golf Competition to raise money for CRY, this I had to arrange within 5 weeks as that is how long for the only day available to me, therefore I could only get a limited number of players, but although it was not the amount of players I wanted we had a great day, we had every type of weather, sunshine, strong wind and very heavy rain, but did not stop us from finishing the course.,The winner of the event was my uncle Mike Dilley. I am planning a Rushden Open 2006 and having spoken to people since the event I am very confident of getting 40 players which means raising a lot more money.

In Memory of Natalie Joyce Gemma Dow We have received a donation of £390 from Mr. Hadley Dow representing contributions made in lieu of floral tributes for Miss Natalie Joyce Gemma Dow

Mr. Jonathan Cooke has donated £200 by gift aid.

Plusfour LTD “Every month our company holds a draw for its staff and the person chosen can choose a charity of their choice and donate £100 from us. This month your charity has been chosen, so please accept £100 herewith from us with our compliments” Denise Hodgson, Accounts Manager

The ladies of Cameron Walker Court have supported CRY again and held a table-top sale which raised £400. Vera Looker has raised £188.65 from the sale of CRY Christmas Cards. Walton-on-the-Naze Rowing Club members have made a donation of £150. Mrs. P Jackson, Hon. Treasurer, St. James’, Stalmine has sent a donation to CRY of £400. Anne and Emma Jackson have held a sale of CRY Christmas Cards and raised £102.

Round the World Yacht Race “On the 18th September 2005 the Clipper 05/06 Round the World Yacht Race will commence and I will be sailing on Jersey Clipper, braving the southern ocean and sitting for endless days in the doldrums to compete for the Clipper Club. It is a once in a lifetime opportunity, a unique way in which to see the world and gives me the chance to raise money for CRY. I lost my father to a sudden heart attack at the age of 58, which was devastating, however he was fortunate enough to have experienced life, he had travelled the world and played football for his country. Without CRY’s screening programmes many children and young adults will never have the opportunity to live life and experience what the world has to offer.” Sonia Russell Sonia raised £1003.85 46 |

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Biddick School Sports College Pupils from Biddick School Sports College, Washington, Tyne & Wear have raised £1019.75 and made a donation to CRY.

Commerzbank Dress Down Day “Commerzbank raised £787.97 for our October dress down day which has been paid in to the CRY account at the end of last week. We wish CRY every success for the future and hope the money raised by Commerzbank will go a little way to help with future research” Clair Winn, Events co-ordinator.

Centrex Police Training Centre The Centrex, Ashford Police Training Centre Recreation Club has made a donation of £1,368.46. “The student police officers raised the money over a six-week period, when they had fun raising the funds by holding several discos and a quiz.” Vivien Haggarty, Manager.

George & Dragon Darts Match “Please find enclosed a cheque for £100. This money was raised during a charity darts match at Thurton George and Dragon P.H. in memory of one of our friends. Your organization is doing wonderful work and I hope this money will help boost your funds.” Christine Bloomfield

Silly Rhymes for Christmas Time Nigel Smith and Clare Bevan write their own poems and held an evening of Silly Rhymes for Christmas Time. The profits from the show were shared between CRY and Muscular Dystrophy.

Hadrians Wall Walk Julie Rawlings has completed the Hadrian’s Wall Walk and has given a donation of £1069 to CRY.

Capital & County Insurance Nigel Hargreaves of Capital & County Commercial Insurance Brokers has made a ~Gift Aid Donation of £125.

Julia Spencer School of Dancing We have received a donation of £500 from the Julia Spencer School of Dancing. “At long last I am enclosing a cheque for £500, which was raised by the adults and children of my Dance School, at their presentation day. Everyone enjoyed themselves and I am sure that more people came along to support the event because it was for such a good cause. We ran a raffle and sold Teas and Coffees, we even had a ‘Name the Bear’, along with the pens and key rings that you supplied. Anything to raise money.” Julia Westlake, Principal.

CP Ships “Each year our Company has an Annual Party where we hold a raffle donating the proceedings to local charities. This year we asked our staff to nominate a charity and Mr. Rob Griffiths put your organisation forward. Therefore, I am pleased to enclose a cheque for £1000 to go towards your worthwhile cause. CP Ships is a Global Company in the industry of container shipping.” Karen Theobald, Senior Administrative Assistant.

The Buckingham Town CC Annual Cricket Sixes Fun Day The Buckingham Town CC Annual CRY Cricket Sixes Fun day raised £1255. “Happily we were able to run our second cricket sixes in 3 years (year 2 ground repairs led to Barclays R&L stepping in to auction the prizes) and the day was a great success. The ground was made available in August ahead of the ECB repair work, the weather was perfect and the day was fun. At one point we had every age group in the club from under 6 to the more veteran seniors on the ground. The atmosphere was fantastic and matched the excitement of the inaugural event.” Nevill, Eszter, Dominic and Robin Pritchard. Barclays plc West Yorkshire have made a match giving donation of £750.

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Other CRY Publications Available

Information leaflets - general leaflet, counselling / support leaflet and sports cardiology / referral leaflet. Posters - for hospitals and surgeries, providing medical information and support networks around the UK.

SADS Booklet ‘When a young person dies suddenly SADS sudden arrhythmic death syndrome’ is a booklet that has been produced with funding from the British Heart Foundation (BHF). The booklet has been written by Dr Elijah R Behr MA MRCP and provides information for the family and relatives of a young person who has died of Sudden Arrhythmic Death Syndrome - SADS sometimes called sudden adult death syndrome. The booklet is available free upon request,and is also available on the CRY websites including at www.sads.org.uk A5 Brochure Update

Research Booklets(Issue 1 & 2)

CRY has made a significant contribution to research in sports cardiology since 1995. A selection of these articles are available upon request in issues 1 and 2 of our Research Booklet.

Annual Report

A 16 page colour report of CRY’s achievements over the previous year in the following areas... Research info, counselling support, raising awareness, donations.

Including medical information on the most common causes of Young Sudden Cardiac Death (diagnosis, symptoms, genetic implications, and treatment) written by NSF Chapter 8 experts in the area including Professor The first seven chapters of the NSF conMcKenna (CRY Patron) and Dr Sanjay centrated primarily on disease in the arteries. The publication of this new chapter Sharma. completes the set by addressing diseases of the heart’s electrical systems. It provides new models of care and markers of Hansard Debates quality to support further improvements in services for arrhythmias and better preHeart Disease (Young People) vention of sudden cardiac death Official Parliamentary Report House of Commons, June 2001 Bath Half Marathon Programme Cardiac Risk in the Young (Screening) Bill Official Parliamentary Report Former International Rugby players ran in House of Commons, March 2004 the Bath Half Marathon. Get this souvenir programme of the event. Coronary Heart Disease Westminster Hall June 2005

If you would like an A4 or A3 colour copy of any of the pages in the update please email Mark (mark@c-r-y.org.uk) or call the CRY office. These pages can also be laminated upon request.

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Issue 41

Bulletin Board

Overseas challenge events are one of the most successful fundraising initiatives to have been introduced to the UK in recent years and due to popular demand Skyline are now increasing their exciting range of overseas fundraising events. From cycling across Peru to braving the heat by trekking across the desert, Skyline gives you the opportunity to raise thousands for CRY. Interested? Then contact the CRY office for more details. Our Price records are offering a new service to anyone holding a charity event that incorporates a raffle or auction. Our Price has a catalogue of varied memorabilia items that can be acquired for such events. The pieces include music memorabilia, film memorabilia, sporting memorabilia - and more. In return for supplying up to four items for an event, Our Price will keep 50% of the final sale value / raffle proceeds from each item, with the other 50% going to charity. To see the items in the Our Price memorabilia catalogue go to www.ourpriceplc.com. If you would like to find out more about how this scheme works, please contact Kerry in the CRY office atkerry@c-r-y.org.uk

If you sell items on eBay, it is now possible to donate a percentage of the sale value to CRY. When listing an item to sell, the page that asks you to set the starting price for bids on your item, also now has an option to 'donate to charity'. Click here and follow all the instructions, and you will be able to select CRY as your charity of choice. The 'eBay for Charity' scheme was piloted by the BBC's Children in Need appeal, and is now open to all charities that register for the scheme. If you have any queries about how this works, please contact Kerry in the CRY office at kerry@c-r-y.org.uk

Ring Fenced Funding Please remember that unless you notify us and get the necessary documentation and confirmation from the office for “ring fenced” fundraising before you start a fundraising venture, all funds raised will be used for CRY Core Funding. Retrospective “ring fencing” is unfortunately just not possible. CRY cannot be responsible for any “ring fenced” fundraising unless it has been authorised. “Ring fenced” fundraising is for specific projects only. After the successful conclusion of the authorised project, fundraising will be directed again to CRY Core Funding. Because of the appeal of certain projects, some will have a waiting list.

I can also tell you about another fundraising scheme using the Internet. You can raise money for CRY just by searching the web. CRY is now listed on www.everyclick.com - a search engine that helps charities. When you want to search the Internet, please go to: www.everyclick.com/uk/cardiacriskintheyoungcry rather than using a search engine. From here you can search the web and help CRY at the same time. Staying with quick-and-easy electronic donations, it is now possible to donate to CRY by text message. ‘To donate £3 to Cardiac Risk in the Young, simply text CRY to 84858. Messages are charged at standard rate. You will receive two confirmation messages, charged at £1.50 each. CRY will receive your donation net of charges applied by mobile network operators and a processing fee. If you have any questions regarding this service, please call 020 7549 2222.’ You are welcome to ‘spread the word’ about this text donation service, although you must use the text above (everything from “To donate £3 to Cardiac Risk in the Young…” down to the phone number).

With the hundreds of people who continue to support CRY through various fundraising events, it is impossible to give everyone a space. But please be patient and I will try to get your story in as soon as possible. When you do send in a story, it would be brilliant if you could take photos of the event and a write up of what took place. Please also clearly state how much was raised, by whom, and if its for a specific memorial fund. Issue 41

If you have any news or would like any item to be considered for the bulletin board please e-mail: mark@c-r-y.org.uk Thank you for your continued support of CRY and don’t hesitate to let me know of any ideas you may have to improve our service to you. Regards Mark Fox Cardiac Risk in the Young

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I’ll lend you for a little while a child of mine, God said, For you to love while he lives, and to mourn for when he’s dead It may be six or seven years or forty-two or three But will you, till I call him back, take care of him for me ? He’ll bring his charms to gladden you, and should his stay be brief, You’ll always have his memories as a solace in your grief. I cannot promise he will stay, since all from earth return, But there are lessons down below, I want this child to learn. I’ve looked this whole world over in my search for teachers true, And from the folk that crowd life’s lane, I have chosen you. Now will you give him all your love and not think the labour vain Nor hate me when I come to take this lent child back again ? I fancy that I heard them say” Dear God, Thy will be done, For all the joys this child will bring the risk of grief we’ll run. We will shelter him with tenderness, we’ll love him while we may, And for all the happiness we’ve ever known, we’ll ever grateful stay, But should the angels call him much sooner than we’d planned, We will brave the bitter grief that comes, and try to understand”.