CRY Update Magazine - Issue 67

Page 1

Cardiac Risk in the Young News and Events | Raising Awareness | Our Fundraisers

Update 67 | May to August 2015

In this

Newsletter England Rugby CRY screening

| 12

Behind every statistic...

| 14

CRY at the conferences

| 18

BBC Radio 5 live special

| 20

CRY Heart of London Bridges Walk 2015 | 21 Prudential RideLondon-Surrey 100 2015 | 24

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

@CRY_UK

CardiacRiskintheYoung


CRY Update 67 May to August 2015 Editor Alison Cox MBE

Founder and Chief Executive

Deputy Editor James Slade

Newsletter Coordinator

As Deputy Editor of the Update it is my responsibility to put together this newsletter, and it is my ambition that you should find all the CRY news, events and fundraising in the following pages to be of interest. I always endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to get in touch with me if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section. I would appreciate hearing from you at james@c-r-y.org.uk or on 01737 363222 if you have any feedback or comments regarding previous issues. Thank you for your help.

Contributors Dr Steve Cox

Deputy Chief Executive

Kanika Bhateja

myheart Coordinator

Inside Update 67 Meet Our Representatives News from the Chief Executive Extra CRY News Newsletter from the Deputy Chief Executive CRY Screening Report myheart News CRY Centre for Cardiac Pathology (CRY CCP) Report

3 4 12 14 15 16

Research News BBC Radio 5 live Special CRY Heart of London Bridges Walk 2015 Prudential RideLondon-Surrey 100 2015

18 20 21 24

Our Fundraisers Raising Awareness in the Media Fundraising Events 2016

Professor Mary Sheppard Consultant Cardiac Pathologist Rebecca Zouvani Fundraising Manager Head Office: Unit 1140B The Axis Centre Cleeve Road Leatherhead KT22 7RD Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more. If you can supply a write up or photos for any fundraising activities that you have taken part in, please email the deputy editor at james@c-r-y.org.uk. Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised. Articles can only appear in the “Raising Awareness in the Media” section if we receive permission from the publishers to reproduce the article. Images of CRY Patrons and Members of Parliament throughout have been highlighted in red.

2

No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor. The Editor and Committee welcome letters but reserve the right to edit when necessary and to withhold publication Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of the Editor or Officers of the Committee. Articles pertaining to health related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

17

27 96 106

On the cover: for more details regarding the events shown, please turn to the corresponding page references below. Images are listed clockwise from top left: • CRY Consultant Cardiologist Professor Sanjay Sharma is presented with the first Viviane Conraads Award at EuroPRevent 2015 in Lisbon, page 18 • AXA Lytham organise six months of fundraising for CRY, page 84 • Progressive Building Society hold the “Paws in the Park” fundraiser in memory of Stuart Ross, page 72 • 12-year-old Grace McAvoy completes a triathlon in support of her younger brother, who has a heart condition, page 91 • Jill Clark and family hold a football match and fun day in memory of her husband, Wayne, page 37 • CRY Patron Nick Easter and England Rugby promote their CRY cardiac screening before the Rugby World Cup 2015, page 12 • Nearly 2,000 CRY supporters take part in the CRY Heart of London Bridges Walk 2015, page 21 • The British Ladies Society in Kuwait raises awareness and funds throughout 2014 in memory of Farah Hamid’s son, Shamil, page 47 • CRY Patron Tom James MBE launches a 25-hour ergothon at Trinity Hall Boat Club, page 94 • CRY is awarded with a €32,000 Fundación MAPFRE prize for “Best Health Promotion Initiative”, page 7 • The “Blister Sisters” walk 60km across the South Downs, page 90 • St Columba’s School and Bishopton Rugby Club hold a rugby match in memory of former pupil and teammate Matthew Seymour, page 73 • 50 CRY cyclists including Patron Matt Wells take part in the Prudential RideLondon-Surrey 100 2015, page 24

Copyright © 2015 Cardiac Risk in the Young. Registered Charity No. 1050845 A Company Limited by Guarantee. Registered in England No. 3052985 Registered Office: Helmores UK LLP, 13/15 Carteret Street, Westminster, London, SW1H 9DJ

Issue 67 | May to August 2015


Meet Our Representatives football with his friends every night and went to all of the home Hull City games and some away games. Josh was a popular young man and had many friends who looked up to him. He had a zest for life and always had a smile on his face. We were amazed at the amount of friends Josh had, showing us how well-loved and popular he was among his peers – and still is now.

Donna and Rich Fell Representatives in East Yorkshire We live in Hornsea, East Yorkshire, which is a small seaside town on the east coast. We are honoured to be asked to represent CRY. We lost our son Josh aged 15 on 9 June 2011. He went out to play football with his friends on a warm summer’s evening, and that was the last memory we have. He passed away on the football field at his school, where he was playing with his friends. Josh loved football and loved Hull City FC. He would go to the school to play

The worst thing for us was waking up our 9-year-old daughter, Jasmine, the next day to tell her that her brother had passed away. That will stay with us forever. Our families and friends rallied round and I’m not sure where we’d be without all of the support. We had to wait four weeks to find out the cause of death, and when it came back as SADS (sudden arrhythmic death syndrome) we were at a loss as to how a perfectly healthy, fit 15-yearold boy could just have his whole life taken away from him in the blink of an eye. Even today we still can’t believe that our beautiful, healthy son has gone, leaving a massive hole in our lives. Two of Josh’s 14-year-old friends tried to revive him until the paramedics arrived but it was too late, he’d gone. He was just 15 years old! How could he just not come home? We were sat in the coroner’s office weeks later, waiting for the death

certificate, when we were handed a CRY leaflet by the coroner. It was at that point we knew straight away as a family – including our daughter Jasmine – that we would do whatever we could to raise funds and awareness for Cardiac Risk in the Young. Since losing Josh we have both managed to work full time; I’m not sure how we manage it at times, but it keeps us occupied. Jasmine has now started at the secondary school where her brother passed away and every time she goes onto the field she is reminded of her brother. We are fortunate enough to be able to fund screening events every year and our main focus of fundraising is to raise awareness of these hidden heart conditions and to support CRY however we can. Without CRY we don’t know where we’d be today. We have both written our stories for CRY. Rich was asked to write for the “A Father’s Grief” booklet in 2013 and I have written on the My Story section of the CRY website. Not a day goes by without us thinking or talking about Josh. He will always be our son and it remains for us to ensure his legacy and memory lives on. Our aim is to make a difference to other people’s lives – and even save lives – through screening, and to raise awareness. You should never outlive your children!

www.c-r-y.org.uk

3


News from the Chief Executive strength emanates from local communities throughout the country, driven by the phenomenal determination of our families, their friends and supporters to introduce screening into their community.

Alison Cox (MBE) CRY Founder & Chief Executive In 1995 I founded Cardiac Risk in the Young, working initially from the tiny box room of our house, and moving later to a rented local office in a small industrial estate. I had been warned that 40% of new charities went to the wall within two years so decided, instead of concentrating on just one thing at a time, we would hit the ground running and deal with what I felt were the four key goals – raising awareness; screening, which would feed research; and most importantly of all, supporting families after their tragedy. These four aims have not changed and after 20 years are still our focus today. I am now going to be taking a step back. I will still be supporting bereaved families, but I feel that the responsibilities of Chief Executive should rest on younger shoulders than mine. CRY is still an incredibly important part of my life and always will be. I will carry on working at CRY, but give my attention in the future primarily to the bereavement support programme, and ensuring our voice is heard in the corridors of power at Westminster. Much of what had to be fought for in the early years of CRY no longer applies, which suggests we have achieved many of the original goals that were so ground-breaking at the time. Families now can expect to be referred for all the necessary tests after a tragedy. Expertise is, mostly, recognised as being essential. Referrals are, usually, done quickly; and the cardiology is, in the main, managed appropriately. Today we have become a charity that supports thousands of bereaved families with our own office of over 40 staff; 20 doctors who have been trained by Professor Sharma at St George’s Hospital; 4 lab technicians at the CRY Centre for Cardiac Pathology under Professor Mary Sheppard; and 100 part-time clinical physiologists who work “in the field” to support our screening programme. CRY now raises over £3,000,000 annually to offer support to families affected by a young sudden cardiac death, and those young people who have been diagnosed with a condition. Two decades ago I had a vision of “normalising” heart screening for young people and in our 20th anniversary year, we are starting to achieve this by screening over 20,000 people! We are a charity whose

4

One of the greatest challenges for any successful organisation is that at some point it is inevitable the founder will have to be replaced in their role as CEO. Having considered all the options for a new Chief Executive, the Board unanimously decided on June 2 to make an internal appointment, and chose Deputy Chief Executive Dr Steve Cox as the most appropriate next Chief Executive from the start of 2016. Steve has been a part of CRY’s history from the beginning and is no less passionate in his aim to prevent young sudden cardiac death than I am. He has played an instrumental part in bringing CRY to the forefront of research, developed novel ways to improve CRY’s screening programme, and had a vital role in CRY’s most significant achievements. Probably most importantly, Steve shares CRY’s values to the core, knowing the type of organisation I have always hoped it will continue to be: representing CRY families and ensuring that they are always central to CRY’s decisionmaking.

May Dr Aneil Malhotra interviewed on BBC Wales May 6 CRY Research Fellow

Dr Aneil Malhotra A 20-minute BBC Wales report focused on the sudden death of 29-year-old Danny Jones on May 3, who played rugby league for Keighley Cougars and Wales. Dr Aneil Malhotra, CRY Research Fellow, was contacted by the BBC to offer his expertise for the report. In response to immediate questions about screening in sport, Dr Malhotra confirmed, “80% of sudden cardiac arrests occur without any preceding symptoms”, explaining, “that’s why there is an argument to actively go out and look for these conditions.” Danny Jones was later confirmed to have died from an undiagnosed heart condition.

Rich Fell and Dean Windass interview for Hull City FC May 7 CRY Representative Rich Fell and former Hull City striker

Issue 67 | May to August 2015


News from the Chief Executive Dean Windass participated in a short video for the club about Dean’s four-year involvement with fundraising in memory of Rich’s son Josh (pictured), who died aged 15 in June 2011. Dean, a club ambassador for Hull City, has been involved in the Fells’ efforts ever since they began fundraising with the club, and in April donated his man of the match trophy from Hull’s Premier League promotion play-off final which went on to raise £3,500 at auction. To view the video please visit www.youtube.com/ watch?v=oPpvglraz3U

Gregory Mertens – all in the space of 11 days – caused a terrible shockwave across the European sporting community. The elite athletes were aged between 23 and 29. CRY Deputy CEO Dr Steve Cox delivered CRY’s response – calling for comprehensive UK screening of all young people – which was quickly picked up across online news media and printed in full on the sports news pages of the Daily Mail. CRY Consultant Cardiologist Professor Sanjay Sharma was also interviewed on the Al Jazeera news channel. Immediate subsequent coverage included Stray FM (Yorkshire) and The Weekly News interviews with Dr Steve Cox, a full page feature in the Daily Express including an interview with CRY supporter June Boulton, and another full page feature in the Daily Mail including an interview with CRY Research Fellow Dr Aneil Malhotra. As we have previously seen, the international impact of an elite athlete’s sudden death raises immediate concerns in the press and public consciousness about the importance of heart screening – and the argument must quickly be expanded to concern not just that specific league or sport, but every young person.

Dean Windass presents his trophy to the winning bidder, with Richard and Jasmine Fell

Pixie satchel raffled for funds May 9 A Cambridge satchel donated by CRY Patron Pixie Lott was raffled at a fundraiser held by CRY London Marathon runners Suzy Kerton and Fiona Barnes. Suzy and Fiona held a silent disco and raffle at Mahiki nightclub in London on May 9, and Pixie’s satchel helped to raise £600 in memory of Fiona’s partner James Phillips (pictured right).

Dr Steve Cox issues CRY response to the sudden deaths of three elite sportsmen May 11 The fatal cardiac arrests on the field of Welsh rugby league player Danny Jones and Belgian footballers Tim Nicot and

www.c-r-y.org.uk

The Daily Mail article and CRY’s full response can be found at www.dailymail.co.uk/sport/football/article-3076630/ Tim-Nicot-dead-Second-Belgian-footballer-dies-cardiacarrest-two-weeks-death-Gregory-Mertens.html

Rio Ferdinand backs CRY at Why Not Run May 17 Former England Captain Rio Ferdinand was interviewed by local radio station Kent Sports News at Why Not Run – a fundraiser at Farringtons School raising money in memory of Ben Daniels (pictured right), who died aged 15 in March 2011. Rio said, “CRY is something that’s been very relevant in my life”, making reference to perhaps the two most wellknown footballers affected by undiagnosed heart conditions: “Before Fabrice Muamba, I played with Marc-Vivien Foé, two people who had bad things happen to them”.

Image credit: Football.ua

Rio added: “This is great because they come into the school here at Farringtons – where three of my kids go –

5


News from the Chief Executive and do the screenings every year now, so that’s something that is definitely of good value and importance.” Half the proceeds from Why Not Run go to the Ben Daniels Memorial Fund, which will continue to fund CRY screenings in the local area.

BBC Radio 5 live airs special with John Inverdale May 19 A high-profile 5 Live Sport special was driven by our Patron John Inverdale in the aftermath of the deaths of Gregory Mertens, Tim Nicot and Danny Jones. The programme was an hour long and broadcast in a peak time slot from 8:00pm. It first featured a poignant interview between John and CRY supporter Stephanie Hunter, whose first husband, Howard (pictured top right) died aged 32. Her son Sebastian (pictured below right), died aged 15, 10 years after his dad, and of the same condition that killed his father. Because Howard’s post-mortem had incorrectly reassured Stephanie that he had not died of a genetic condition, she had not been alerted to the fact that their children should be screened. The first half of the programme focussed on John, who was playing rugby with Howard when he died, talking to Stephanie about the shock of Howard’s death, followed by

Clockwise from top left: CRY Patron John Inverdale, CRY supporter Stephanie Hunter, BBC presenter Mark Chapman (image credit: BBC Radio 5 live), CRY Consultant Cardiologist Professor Sanjay Sharma and Professor Domenico Corrado

6

that of Sebastian, who also had no symptoms and, like his father, died playing rugby. The second half of the programme was a dialogue between presenter Mark Chapman (who was receiving public feedback during the entire programme through a phone-in and Twitter), Sanjay (who was in the BBC London studio) and myself (who was in the BBC Manchester studio with Mark). An interview with Italian expert Professor Domenico Corrado explained the Italian screening programme, which has now been in place for over 30 years, and which we have always used as our inspiration that screening is indeed viable – a view strongly rejected by UK cardiologists when I started CRY 20 years ago. It was a very emotive, hard-hitting programme to participate in, and to have 60 minutes of a BBC primetime programme dedicated to CRY and young sudden cardiac death ensured that we had maximum impact and reached a massive audience. Huge support on social media drew attention to it which included tweets by our Patrons Phil Packer MBE, Pixie Lott and Alison Waters. The programme was also discussed on 5 Live the next day during half time of Premier League fixture Arsenal v Sunderland. For more details about the special programme please see the article on page 20.

Gregor Townsend offers support at rugby fundraiser May 23 CRY Patron Gregor Townsend MBE, Head Coach of Glasgow Warriors, recorded a special video message in support of a memorial rugby match for Matthew Seymour (pictured below). Matthew suddenly died in October 2014, aged 21, and the match was played between his rugby club, Bishopton, and his former school, St Columba’s. Matthew’s family offered their thanks to everyone who had supported the fundraising day, which raised over £2,500, saying, “As a family, we have been overwhelmed by the love and support we have received since we lost our lovely son Matthew.” For a write up of the event from Matthew’s family and for Gregor’s video please visit www.c-r-y.org.uk/rugby-matchin-memory-of-matthew-seymour

Issue 67 | May to August 2015


News from the Chief Executive 33 CRY runners including Bill Neely take part in the Bupa London 10,000 May 25 Thank you and congratulations to all of our fantastic runners in 2015’s Bupa London 10,000. This is another big event which continues to grow for the charity, with 50% more runners than last year – increasingly helping to raise awareness and funds. We are very grateful to CRY Patron Bill Neely for taking part just one month after running the Virgin Money London Marathon for CRY.

June BBC Radio 4 conversation with Chris Currie June 12 As part of an emotive series for Radio 4, Chris Currie (pictured), 29-year-old myheart member, spoke to his friend Clare about the effect a brain injury has had on his memory, behaviour and their friendship. Chris’s brain was starved of oxygen following a sudden cardiac arrest whilst he was on holiday in Thailand and he was fortunate to survive. Nonetheless, Chris’s case highlights that a cardiac arrest brought on by an undiagnosed heart condition can have serious consequences even in the rare cases that tragedy can be averted.

Social Outreach Awards recognise people and institutions that have made “outstanding contributions for the benefit of society in the scientific, cultural and social fields”. In this latest, annual round of awards, there were 450 nominations from Spain, Portugal and Latin America. Her Majesty Queen Sofia of Spain presented the “Award for the Best Health Promotion Initiative” to CRY, granted due to “the significant contribution of the organisation to the promotion of health and the improvement of the quality of life, the degree of innovation and the originality of the action undertaken”.

The short recording remains available at www.bbc.co.uk/ programmes/b05xqbw6

CRY wins Fundación MAPFRE “Best Health Promotion Initiative” award June 15 CRY Chairman Hugh Mulcahey and I were honoured to be invited to accept an international award on CRY’s behalf at a special ceremony in Madrid. The Fundación MAPFRE

www.c-r-y.org.uk

7


News from the Chief Executive The jury that awarded the €32,000 prize was made up of José Luis Zamorano, Head of the Cardiology Department of the Ramón y Cajal Hospital; Gregorio Varela, Chairman of the Spanish Nutrition Foundation; María Dolores Limón, Director of the National Institute for Occupational Health and Safety; Joaquin Poch, Chairman of the Royal National Academy of Medicine; and Joaquín Rubio, of the Directorate General of Public Health of the Ministry of Health, Social Services and Equality, as well as Fundación MAPFRE representatives.

Nearly 2,000 supporters take part in the CRY Heart of London Bridges Walk June 28

An astonishing number of CRY supporters – 1,925 – made the 2015 CRY Bridges Walk a truly momentous day in the charity’s 20th year. Since the annual event was first started in 2007 by our Patron Kathryn Harries the walk has become a massive opportunity to raise awareness in London. A huge thank you to everyone who took part. The previous day I was glad to be invited to take part in a BBC Radio London programme with Molly Schiller, aged 16, the older sister of Max Schiller. Max was 10 years old when he died of undiagnosed hypertrophic cardiomyopathy less than six months earlier in January. The 69 walkers for Max, including Molly and her parents David and Shira, were one of many large groups at the event. I was very pleased to have the chance to speak to many of the walkers on the day. Unfortunately Kathryn could not join us for the first time this year as she was recovering from surgery, but in a message for our 20th anniversary she said, “Walking through the busiest part of

8

London on a Sunday morning makes a huge impact on the wider public and it will always be an honour for me to walk alongside families who have faced the worst life can throw at them and still think of the welfare of others.” For more details, please see the article on page 21 or visit www.c-r-y.org.uk/cry-heart-of-london-bridges-walk-2015

July England Rugby publicises CRY screening July 3 England international and CRY Patron Nick Easter fronted a fantastic short film showing all 50 England players undergoing cardiac screening with CRY in preparation for the Rugby World Cup 2015 in September. In addition to Nick, also speaking on the film were Dr Nigel Jones, England Rugby Senior Team Doctor, and Dr Andrew D’Silva, CRY Research Fellow and the screening cardiologist on the day.

CRY Research Fellow Dr Andrew D’Silva

For more information please turn to the article on page 12 or for the video please visit www.englandrugby.com/ news/features/player-welfarethe-heart-england-camp

BBC South East Today reports on the death of Junior Dian July 8 CRY supporter Roger Maddams took part in a BBC South East Today report following the death of 24-yearold footballer Junior Dian. Junior suffered a cardiac arrest the previous day while playing football Jack Maddams played for Tonbridge Angels at Chelsea’s Stamford Bridge in 2007 in a friendly for Tonbridge Angels, the same club that Roger’s son Jack played for before he died in his sleep in March 2008, aged 17.

Issue 67 | May to August 2015


News from the Chief Executive Roger, whose CRY fundraising in Jack’s memory has reached over £55,000, spoke of the crucial importance of cardiac screening in grassroots sport: “Even if it made one less incident like today happen, it would be a result. The heartache – the pain for families, colleagues, friends – is awful, so anything we can do to prevent that happening has got to be worthwhile.”

Sian Regan speaks to BBC Radio Wales about grief July 9 Sian Regan (pictured top left), a CRY Bereavement Supporter, was interviewed on Good Morning Wales by Oliver Hydes about grief, on what would have been her brother’s 30th birthday – 21-year-old Gareth Thomas (pictured below left) died in February 2007. The hospice care charity Sue Ryder had conducted a survey researching the grieving process, and also speaking on the programme was their Assistant Director of Palliative Care, Sam Cheverton. Sian spoke on the programme about her own experience, emphasising that she particularly found that talking could be a great help, and this led her to pursue bereavement counselling training to help other siblings of victims of young sudden cardiac death.

Sports Minister considers Italian-style sport screenings in UK July 9 In reaction to Kent footballer Junior Dian’s sudden death, Kent MP Tracey Crouch, Minister for Sport and a qualified FA coach, raised the Italian system of conducting routine screening in sport to prevent further sudden cardiac arrests on Twitter. A Mirror article featured the comments and CRY’s response following the tragedy from Deputy CEO Dr Steve Cox. For the article please visit www.mirror.co.uk/news/uknews/ministers-want-health-checks-sunday-6036564

BBC Radio Kent report features Roger Maddams and Dr Steve Cox July 22 Roger Maddams took part in another BBC interview with Radio Kent’s John Warnett and Maggie Doyle two weeks after the well-publicised death of Tonbridge Angels trialist

www.c-r-y.org.uk

Junior Dian. Roger’s son Jack, who died aged 17 in 2008, had played for the club. The initiative Football Fightback aims to screen every player aged between 14 and 35 participating in grassroots Kent club football. As Tonbridge Angels Chairman Steve Churcher argued, “In Italy all organised sport has to have a heart screening, which has Minister for Sport Tracey Crouch MP reduced sudden deaths by 89% – for a £35 screening, that’s absolutely a no-brainer from our point of view.” The wide-ranging report spoke to CRY Deputy Chief Executive Dr Steve Cox for his expertise on how sports like football can exacerbate heart conditions, as well as Kent FA Chief Executive Paul Dolan and Sports Minister Tracey Crouch MP – a Kent native. Paul Dolan admitted that the Kent FA “don’t currently have any financial provision for this programme within our budget”, but agreed that collaboration between national sport associations and the government, as in Italy, might be the answer: “I firmly believe this is something that should be replicated in the UK, and the FA and football should take a lead in this due to the sheer levels of participation that we have.” Encouragingly, Tracey Crouch MP has been open to discussing preventative measures, saying on the programme: “Perhaps we can implement something that is very similar to the Italian system and screen our young athletes to make sure that those at risk are taken care of.” BBC Radio Kent caught up with Roger Maddams for an update on his Football Fightback fundraising on August 10, for which he has committed to cycle to every Tonbridge Angels away fixture this season.

CRY responds as UK NSC recommend against screening July 31 Dr Steve Cox, CRY Deputy Chief Executive and Director of Screening and Research, issued a statement on behalf of CRY heavily criticising the “shocking” conclusions and “dismissive” attitude of the UK National Screening Committee (NSC) as they announced they would be recommending against screening to reduce the incidence of young sudden cardiac death.

9


News from the Chief Executive It is a grave understatement to say that we were disappointed by the recommendation, which is not due to be reviewed again until 2018/19. The NSC acknowledged our concerns about their deeply flawed evidence review when it was published in 2014, and we strongly urge them to pay attention to our criticism of their decision. For the NSC announcement, and to read our response, please visit www.c-r-y.org.uk/national-screeningcommittee or turn to page 14 for further comment from Steve.

August 50 CRY cyclists including Matt Wells take on the Prudential RideLondon-Surrey 100 August 2 Our CRY cyclists enjoyed perfect riding conditions on the Sunday of the race, and I was delighted to come and speak to many of them with their supporters in the afternoon. Olympian and CRY Patron Matt Wells was again one of the cyclists in CRY’s white and red. An eye-catching new CRY cycling jersey also made its debut at the event. Thank you and congratulations to everyone who took part.

You can read a report of our interview at www.964eagle. co.uk/news/local-news/1691880/after-second-tragedyat-cycling-event---grieving-partner-calls-for-more-healthchecks For more about the event, including a full list and photos of the cyclists, please turn to the article on page 24.

Elaine Ward Sheffield screening generates radio and TV publicity August 5–6 Our Representative Elaine Ward ensured a great deal of publicity for CRY screenings held in Sheffield in memory of her 17-year-old son Neil (pictured), who suddenly died in December 1992 at a scout meeting. Interviews with myself and Elaine were broadcast on Radio Hallam, while BBC Radio Sheffield and BBC Look North also spoke to her about the event. Elaine reported: “We had an amazing day yesterday at Sheffield United’s Bramall Lane. Radio Hallam interviewed me the day before and it was on together with something from Alison Cox. The Sheffield Star took lots of photos and are going to run a big piece. I’ve also got the article from the Derbyshire Times with Natascha’s photo – quite a large piece. “BBC Radio Sheffield did interviews with myself, the doctor and Gareth, and a young woman who had just had an ECG. We all then listened to it at 12:30 as I had taken in a radio. Everyone clapped. “BBC TV Look North cameras came in the morning. Ian and I got the train up to Leeds and appeared on the sofa

I was later interviewed by Surrey’s Eagle Radio after the race along with CRY RideLondon cyclist Nicola Tait. Nicola’s partner Kris Cook suffered a cardiac arrest while they were taking part in 2014’s event and she was determined to participate again, this time for CRY in his memory, as part of a team of 15. Eagle Radio interviewed us following another fatal collapse at 2015’s event, reinforcing the potential dangers of endurance events for anyone who has a cardiac issue they are unaware of.

10

Sheffield United footballer Louis Reed presents a signed shirt to Elaine Ward

Issue 67 | May to August 2015


News from the Chief Executive with Harry Gration and Amy Garcia in the late afternoon. It was such a professional piece. They had film of the interview with the doctor overlooking the pitch and a lad having an ECG, family photos of us and then the interview with Ian and myself. Tony Currie, ex-England player, popped in at my invitation. We were also presented with a signed Sheffield United shirt by up-and-coming star Louis Reed.” For the BBC News article on the screening please visit www.bbc.co.uk/news/uk-england-southyorkshire-33807004 For Sheffield United’s article following the screening please visit www.sufc.co.uk/news/article/united-issupporting-the-work-of-cardiac-risk-in-the-young-cryby-hosting-a-screening-session-at-bramall-lane-on-6thaugust-2535122.aspx

Q Radio interviews Dr Aneil Malhotra August 11 CRY Research Fellow Dr Aneil Malhotra participated in a short interview with Northern Ireland’s Q Radio ahead of a CRY screening scheduled for September 5 at Ulster University, Coleraine Campus. Dr Malhotra explained that the reason for CRY’s screening programme is to actively look for dangerous conditions that are notoriously asymptomatic. He stressed both the importance and simplicity of cardiac screening, stating, “It’s an easy, quick test to undergo.”

Paul Clabburn responds to NSC report featured on PoliticsHome August 17 CRY supporter Paul Clabburn penned a critical and incisive report on August 7 concerning the July verdict of the UK National Screening Committee that screening for conditions causing sudden cardiac death should not be implemented. Paul posted the article on the memorial fund website for his son, Tom (pictured), who died aged 14 in October 2007, and Tom’s mother, Claire Prosser, who also died of a heart condition in December 2014. On August 17 a shortened version of Paul’s article was published on the political news website PoliticsHome, where it was featured on the front page, breakfast briefing bulletin and as a top health story of the day. Paul opens his report with: “The announcement by the UK

www.c-r-y.org.uk

National Screening Committee (UK NSC) that it will not be recommending a national cardiac screening programme for young people aged 12–39 left me, as with much in life, with more questions than answers, a healthy dose of bewilderment, no little anger and much sadness.” Paul’s bewilderment, anger and sadness are obvious in the article that follows, but his skill as a journalist ensures the questions raised by the UK NSC’s recommendation are even more apparent as he methodically investigates their decision and supporting documents. These are questions like: “Wouldn’t it have been reasonable for a UK review to look at current UK, rather than global, costs?” Both versions of Paul’s article remain available online. For Paul’s PoliticsHome article please visit www. politicshome.com/health-and-care/articles/opinion/ cardiac-risk-young/assessing-impact-committee-rules-nouk-cardiac For Paul’s full response please visit tomclabburnfund. co.uk/2015/08/07/back-to-the-future-no-uk-screeningso-its-still-down-to-cry_uk

Kenny Bowen secures funding from Aubrey Orchard-Lisle Charitable Trust August 20 CRY Representative Kenny Bowen (pictured left) has been sending hand-written letters to UK trusts and foundations on CRY’s behalf since 1998. He has applied to 2,054 in total and has secured £425,203.50 so far for CRY from charitable organisations offering grants for healthcare and young persons’ initiatives. Kenny and his wife Maralyn have been outstanding in their support for CRY since the sudden death of their 19-year-old son Ian (pictured below) in October 1996 from Wolff-Parkinson-White syndrome. In August the Aubrey Orchard-Lisle Charitable Trust responded to one of Kenny’s letters and donated funding for CRY screenings amounting to £7,500, I would like to take this opportunity not just to thank the trustees of Aubrey Orchard-Lisle for their generosity, but also to thank Kenny for his continuous magnificent efforts over the years.

11


Extra CRY News England Rugby promote CRY screening England Rugby Football Union, who have been screening their athletes with CRY for over 10 years, took an opportunity to publicise CRY with a short film as part of their summer build up to the Rugby World Cup in England in 2015. CRY Elite Sports Screening Manager Rebecca Osborne led the clinic on June 28 at Pennyhill Park Hotel with 50 elite internationals screened for cardiac abnormalities. The video was published as a feature on www. englandrugby.com on July 3, backed by promotion of the report on England Rugby’s Facebook, Twitter and YouTube channels to over a million social media followers. Fronting the film was Nick Easter, celebrated England and Harlequins veteran and a CRY Patron since 2008. Rebecca explained, “They were going to get any player to be in the video, but

when I mentioned Nick Easter was a Patron it seemed perfect and Nick was happy to help.” The film opens with CRY Research Fellow Dr Andrew D’Silva explaining the screening procedure, and it closely associates the charity with the screening throughout. Famous faces from the England camp fill in medical history forms before their ECGs and consultations with Dr D’Silva. Nick is followed as he undergoes the screening, commenting, “I think it’s important for young people overall, however fit you may be –

there can be hidden issues, especially in your heart”. Dr Nigel Jones, England Rugby Senior Team Doctor, explains the significance of thorough cardiac screening for the England squad on the film: “It’s important with our rugby players that they have trust in the screening process, they have trust in their medical management, that they know that everything is being done that needs to be done to ensure that they stay fit and healthy.” “Just had my consultation with the doctor and everything’s normal,” Nick confirms, “which is always a relief even if you think it might be, but you’ve got the expert’s opinion – so, good to crack on.”

For England Rugby’s feature visit www.englandrugby.com/ news/features/player-welfare-the-heart-england-camp

From left to right: CRY Research Fellow Dr Andrew D’Silva and Dr Nigel Jones, England Rugby Senior Team Doctor

12

Issue 67 | May to August 2015


Extra CRY News Katy Jade Dobson auction Popular young artist Katy Jade Dobson wanted to raise funds for CRY after a family whose child had died of a heart condition commissioned a painting. The Lincoln-based oil painter, renowned for her natural scenes with vivid splashes of colour, researched CRY before deciding to auction the palette and brush she had been using for her previous collection to raise funds for the charity.

She explained, “The palette is where it all begins for me and to close off a collection with signing off the palette is always a very profound moment, and it is incredible to share that and also hopefully raise some money for an amazing charity that make such a huge difference to many people.”

Katy said: “To hopefully contribute towards CRY’s wonderful work means a great deal to me, I have so much admiration for their relentless efforts – from making cardiac screening accessible to young people, to organising Bereavement Support Days. I am incredibly proud to be working with CRY towards this cause.”

Katy went into more detail about her support of CRY in her blog post about the fundraising, which you can read at katyjadedobson. wordpress. com/2015/06/25/ artists-palette-up-forauction-for-charitycry-katy-jade-dobson

Ben Riley auction Staffordshire artist Ben Riley, who has sold out exhibitions of his unique pop-art – made entirely of broken vinyl records – domestically as well as at locations including California and New York, auctioned two 40” by 30” pieces for CRY in August, also writing a personal dedication on the back of the sold canvas for the winning bidder.

Ben explained his reasons for supporting CRY: “A local lady contacted me, telling me that she is helping to raise money for a boy called Dan Hughes that was local to our village. Dan tragically passed away in his sleep at the age of just 28 in March of this year, it was cardiac related. She asked me if I could donate a piece of my artwork and I straight away agreed to help and have donated two pieces – John Lennon and Liam Gallagher.”

www.c-r-y.org.uk

13


Newsletter from the Deputy Chief Executive Behind every statistic... Like so many CRY families, I was also shocked to read the recommendations published in July by the National Screening Committee (NSC). It was incredibly disappointing that CRY’s response to the initial report did not have an impact on the final document, as many of the issues we raised Dr Steve Cox significantly undermined CRY Deputy Chief Executive the validity of their evidence review. It was alarming that they referenced the discredited national SADS (sudden arrhythmic death syndrome) audit, which stated that there were approximately 40 SADS deaths per year (less than 1 death a week). What is hard to understand is how this could have happened. At our last meeting with the NSC in October 2013 we emphasised the importance of correcting their incidence figures. As well as presenting the discredited SADS audit data, the NSC gave far too much weight to incidence figures based on media reports. The data reported from the US is primarily from an author who equates the risk of young sudden cardiac death with the risk of being killed by lightning. These statistics are wrong. This is why we underlined at the meeting that we need to take a step back, to forget the statistics based on what is reported in the media, because it has been established that these are gross underestimations. As we know, the media will usually only report high-profile cases or when there is controversy. A young sudden cardiac death during sleep will often go unreported unless the family become part of an organised campaign. The NSC were not acknowledging what is actually happening in the UK. There is no other organisation like CRY which represents so many families across the country. The fact that CRY supports new families every day after bereavements should mean something. These bereavements are not just statistics; they are the real lives of the families we are trying to support. At the meeting we tried to share our unique experience of well over a thousand families supported by CRY. We also advised the NSC that it was impossible their statistics were correct when we are conducting over 200 post-mortems every year after SADS deaths in young people, funded by CRY at the CRY Centre for Cardiac Pathology, with our investigations governed by the Human Tissue Act 2004.

14

After the meeting we emailed the key paper we published in 2009, which analysed data from the Office of National Statistics’ (ONS). This is the paper, published in a peerreviewed international medical journal, which informs the widely accepted “12 a week” figure. The email with the attachment was acknowledged and we were told it would be forwarded for inclusion – and yet there was no mention or reference to it in the final report. On the NSC recommendation website legacy.screening. nhs.uk/suddencardiacdeath they state: “Sudden cardiac death in young people is always shocking and very sad. This is in part because it is so rare. The chances of sudden heart attacks in apparently physically fit young people are tiny. The overwhelming majority of heart attacks happen in elderly people.” We have never questioned the fact that the incidence is small compared to the fact that we will all die one day. However, it is an insult to the thousands of families whose children have died that policy advisors should be so dismissive and refer to the incidence as “tiny”, comparing it to the single biggest killer of the elderly and middle-aged. If there was an accurate registry of young sudden cardiac deaths to inform the UK Government then they would have to listen. However, this is not going to happen in the near future. Even if it was established, it would not record what has already happened. It would take many years before enough evidence was collated to inform a change in policy. This is why we need your support and your permission to present the names (not just the overall statistics) of all the young people who we know have died suddenly. We need to be able to present this to the Government so they cannot ignore that this is actually happening. That this is not insignificant. Once they accept the true number of young sudden deaths – and the impact these daily tragedies have – then more, much more than is currently being done, will be done. If you feel that you can participate, please answer the questions on www.yscd.org.uk so that we can ensure the name of your child, partner or sibling is acknowledged by the Government. The Government needs to know that behind every statistic is a child, a family, a community, a tragedy. Behind every statistic is a name. Thank you for your support,

Issue 67 | May to August 2015


CRY Screening Report Between May and August 2015 CRY screened nearly 7,500 people, mostly through family memorial screenings.

Sports screenings included: Sheffield EIS, Bisham Abbey EIS, The Royal Ballet, Millwall FC, Bolton Wanderers FC, Manchester City FC, England Rugby Seniors, Leicester Tigers RFC, Wasps RFC, Ipswich Town FC, Newport Gwent Dragons RFC, Ospreys RFC, Bath RFC, Exeter Chiefs RFC, Harlequins RFC, London Irish RFC, Worcester Warriors RFC, Gloucester RFC, Sale Sharks RFC, Saracens RFC, Northampton Saints RFC and Newcastle Falcons RFC. A total of 652 athletes were screened.

At our regular CRY clinics 1,505 young people were screened. Clinics were held at Foyle College, Derry; the University of Ulster, Jordanstown campus (funded by the Northern Ireland Fund); Noble’s Hospital, Isle of Man (funded by Craig’s Heartstrong Foundation); and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology at St George’s Hospital, London.

At 24 family memorial screenings 4,341 people were screened. These were held in memory of Jordan Grant (Preston), Matthew Dewhirst (Shropshire), Josh Fell (Hornsea), James Patterson (Hornchurch), Jamie Clarke (Sussex), Debbie Rendle (Cornwall), Jack Thomas (Caerphilly), Joseph Herrington (Cambridge), Reece Jeffrey (Derby), Craig Salmon (Uttoxeter), Zoe Teale (Birmingham),

CRY screening in memory of Rhian Nadine Fry held at Uckfield Community College, Sussex, on 14 July 2015 Colleen Fry, Rian’s mum, said: “Thank you to everyone concerned for the fantastic screening day at Uckfield College last Tuesday. It went perfectly and every appointment was taken. I met and chatted to Tony, CRY Family Screening Manager, and the rest of the team. They all worked really hard. Just one lovely young student (female) has to be checked again next year – she was very like my daughter Rhian, both in personality and chosen career. I am so grateful to CRY for their patience in dealing with all my concerns prior to the screening. It was a fantastically smooth-running event. Very well done!”

Colleen Fry (centre) is presented with flowers by faculty and students at the screening

www.c-r-y.org.uk

Ben Daniels (Chislehurst), Lily Webster (Stowmarket), Dave Bramwell (Surrey), Jack Boulton (Bristol), Neil Ward (Sheffield), Rhian Nadine Fry (Uckfield), Sam Wright (Derby), Harry Dubois (Altrincham and Salford), Pardeep Nagra (Wolverhampton), Aaron Dixon (Cheshire) and Kris Ledgard (Milton Keynes). A total of 377 young people were screened at 3 school screenings, which were held at Queen Elizabeth Hospital School, Bristol; Cheadle Hulme School, Cheshire; and Churchill School, Surrey. At a further private screening 90 young people were screened, which was held in Dartford, Kent. Further public screenings were held in Billericay, Essex (funded by the Tim Butt myheart Fund); Lytham St Anne’s, Lancashire; and Cheshunt, Hertfordshire, where a total of 484 young people were screened.

What happens at a screening? The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart. The ECG involves lying down quietly and only takes five to ten minutes. Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire. If a more detailed image is needed (about 5–10% of individuals), an echocardiogram can be taken – this is similar to the ultrasound scan that is used on a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform. The screening programme is under the aegis of Professor Sanjay Sharma.

15


CRY Screening Report ECG machine funded in memory of Stewart Howard

The ECG machine, pictured with the CRY screening team, is due to be presented to Stewart’s family at the CRY screening at The Thetford Academy, Norfolk, on 23 April 2016.

Two ECG machines funded in memory of Dr Jenny Bucknell

The ECG machines were presented to Jenny’s grandparents Hillary and Bill Durrant (pictured) at the CRY screening on 28 and 29 October 2015 at The Grange School in Monmouth, Wales.

News Congenital Heart Disease Conference To say the least, 9 July 2015 was full of adventures – it was the day of the Congenital Heart Disease Conference at the Institute of Child Health, Great Ormond Street Hospital, and also of the tube strike! From fighting long queues everywhere to applauding an animated talk on long QT syndrome from an optimistic mother-son duo, the day certainly had its ups and downs! Sian Donnelly, myheart member and CRY Representative, accompanied Kanika Bhateja, CRY myheart Coordinator, to the conference. There were more than 50 nurses from across the UK who attended the course. The annual programme was established for nurses and allied health practitioners working with infants, children and young people

16

CRY Representative Sian Donnelly and CRY myheart Coordinator Kanika Bhateja at the conference

who have congenital heart disease and related cardiac conditions. CRY was invited to hold a stand at the conference so that the course attendees could talk about the services available for young people who are coping with the diagnosis of a heart condition. Just before lunchtime, 20-year-old myheart member James Doherty and his mum Sarah gave a presentation on James’s cardiac condition, long

QT syndrome. The presentation was the highlight of the day as James and Sarah peppered their talk with funny anecdotes and were myheart member James Doherty absolutely optimistic about his condition. Although James has suffered three ICD shocks in the past, he is a keen and successful football player and performed exceptionally in his GCSEs. The CRY stand was visited by the nurses between sessions and Kanika and Sian were available to answer any questions throughout the day. Many of the nurses were curious about myheart meetings and said they felt that emotional support was lacking for people with such life-threatening conditions – especially when they moved from childhood to adolescence – showing a real interest in the myheart Network.

Issue 67 | May to August 2015


CRY Centre for Cardiac Pathology (CRY CCP) Report Professor Mary Sheppard, Consultant Cardiac Pathologist

The CRY pathology laboratory is now fully functioning with the CRY National SADS Database based at St George’s, University of London. We are fully computerised to produce rapid reports for coroners and families. Two technicians left to pursue higher-paying posts in June and August which means a complete programme for appointment and training of new staff beginning September 2015. We had 104 cases from May to August 2015, an increase from 82 in the same period last year. There is also an improvement in turnaround time since 2014. Visitors We are establishing the unit as a national training centre for cardiac pathologists and forensic pathologists. • Forensic Trainee Dr Sara Razali, from Malaysia, visited from May to June. • Lydia Krexi, from the Aristotle Thessaloniki University Medical School in Greece, visited in July. • Dimitra Krexi, from the

www.c-r-y.org.uk

Eleni Konstantinou, Laboratory Technician Timothy Oates, Laboratory Technician Sara Santos Vidal, PA to Professor Mary Sheppard

Aristotle Thessaloniki University Medical School in Greece, visited in August. Awards • Medical alumni award from University College Cork, Ireland, in May. • Academic clinical fellowship from a London deanery for a pathology trainee to specialise in cardiac pathology and carry out a PhD. Teaching • Adult Cardiovascular Pathology course at St George’s Medical School, London, from June 18–19. • Training course for the coroner’s office as lectures in March, April, May and June. Inquests Professor Sheppard attended eight inquests throughout the UK from May to August, attending for the full day and speaking to relatives, which is a vital part of her work with CRY, helping families through their bereavement.

Publications Papers: • Stone JR, Bruneval P, Angelini A, Bartoloni G, Basso C, Batoroeva L, et al. “Consensus statement on surgical pathology of the aorta from the Society for Cardiovascular Pathology and the Association for European Cardiovascular Pathology: I. Inflammatory diseases.” Cardiovascular Pathology. May 2015. • Rydman R, Gatzoulis MA, Ho SY, Ernst S, Swan L, Li W, et al. “Systemic right ventricular fibrosis detected by cardiovascular magnetic resonance is associated with clinical outcome, mainly new-onset atrial arrhythmia, in patients after atrial redirection surgery for transposition of the great arteries.” Circulation: Cardiovascular Imaging. May 2015. • Robertus JL, Sheppard MN, Burrell A. “The Pathological Disease Spectrum of Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC) in Sudden Cardiac Death Emphasising Biventricular Involvement and Challenges in Diagnosis.” Heart. June 2015. • Robertus JL, Sheppard MN. “The CRY Sudden Cardiac Death Database. 18 Years of Referral for Expert Opinion.” Heart. June 2015. • Ryan C, Barbour A, Burke L, Sheppard MN. “Noninfectious aortitis of the ascending aorta: a histological and clinical correlation of 71 cases including overlap with medial degeneration and atheroma – a challenge for the pathologist.” Journal of Clinical Pathology. July 2015.

The CRY CCP were able to make a diagnosis of the cardiac cause of death in all cases with the majority being normal hearts (SADS). Other colours point to many causes which have to be considered in each case.

17


Research News CRY at the conferences

From left to right: CRY myheart Cardiologist Dr Michael Papadakis, Screening Programme Manager Azra Loncarevic-Srmic, Consultant Cardiologist Professor Sanjay Sharma, Deputy CEO Dr Steve Cox, Dr David Oxborough and Research Fellow Dr Harshil Dhutia at EuroPRevent in Lisbon

Professor Sanjay Sharma is presented with the 2015 Viviane Conraads Outstanding Achievement Award at EuroPRevent

CRY Consultant Cardiologist Professor Sanjay Sharma led CRY doctors presenting at major European cardiology conferences throughout the summer of 2015. Current and former CRY Research Fellows presenting their research included Dr Michael Papadakis, Dr Ahmed Merghani, Dr Aneil Malhotra, Dr Greg Mellor, Dr Sabiha Gati, Dr Abbas Zaidi, Dr Keerthi Prakash, Dr Tracey Keteepe-Arachi, Dr Gherardo Finocchiaro and Dr Harshil Dhutia. CRY Deputy Chief Executive Dr Steve Cox and Screening Programme Manager Azra Loncarevic-Srmic joined the CRY doctors in Lisbon, Manchester and London from May to August to represent the charity, helping to tie the cardiology presented at each conference to CRY’s overall strategy and initiatives for the prevention of young sudden cardiac death. The first major European Society of Cardiology (ESC) conference of the year for CRY is EuroPRevent, which in 2015 was based in Lisbon, Portugal, and ran from May 14–16. EuroPRevent is organised by the ESC’s arm for cardiovascular prevention and rehabilitation (EACPR), the category under which CRY’s research into inherited heart disease and sports cardiology falls. It was a very special conference for Professor Sharma, who was granted the honour of being presented with the first Viviane Conraads Outstanding Achievement Award for Established Researchers at the event in recognition of his incredible contributions to medicine in this field. The summer conferences continued with the British Cardiovascular Society (BCS) Conference, the UK’s biggest cardiology meeting, from June 8–10 in Manchester. Amongst the most significant research exhibited was Dr Abbas Zaidi’s study tackling the challenges of diagnosing ARVC (arrhythmogenic right ventricular cardiomyopathy) in athletes, a paper published later that month with an editorial in the Journal of the American College of Cardiology, and as described by Professor Sharma: “as of August 2015, the best study in sports cardiology this year.” An international EACPR sports cardiology training course on August 28 at St George’s, University of London – which houses the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology – was organised by Professor Sharma and CRY myheart Cardiologist Dr Michael Papadakis in collaboration with St George’s and CRY. The day featured presentations on detecting pathology in athletes by renowned experts including Italian cardiologist Professor Domenico Corrado and Swedish cardiologist Professor Mats Börjesson, as well as Dr David Oxborough, an echocardiography expert who has worked with CRY in the past and is based at Liverpool John Moores University.

CRY’s Pete Hinchliffe Award 2013-winner Dr Sabiha Gati at the BCS Conference, a contributing author of the ARVC research led by Pete Hinchliffe Award 2012-winner Dr Abbas Zaidi

18

The ESC Congress 2015 in London was a huge opportunity for Professor Sharma and the CRY Research Group to take

Issue 67 | May to August 2015


Research News

Course Director Professor Sanjay Sharma and Dr Michael Papadakis at the EACPR’s “Sports Cardiology in Practice” training course at St George’s

advantage of the UK location of the annual conference, and the CRY stand attracted a lot of attention over the fiveday event. From August 29–September 2, Steve and Azra fielded questions about CRY’s programmes and objectives while the research doctors showcased their studies. One of Professor Sharma’s responsibilities as Chair of the ESC’s Sports Cardiology Section was to provide a summary of presentation highlights in the field from EuroPRevent in May – a talk which featured current and former CRY Research Fellows exclusively; Dr Harshil Dhutia, Dr Aneil Malhotra, Dr Ahmed Merghani and Dr Abbas Zaidi.

“The Paradox” – a slide from Dr Aneil Malhotra’s sports cardiology research presented at the conferences

cost of effectively screening (i.e. with an ECG and optional follow-up investigation) members of the general population is comparable to that of screening athletes. He stated: “The ethics of limiting ECG screening to competitive athletes are therefore questionable”, but advised that continued refinement of ECG criteria and physician education is “vital” to further reduce the cost of detecting cardiac conditions.

CRY Fellow Dr Dhutia won an ESC Best Poster Award with his study “Screening for cardiac conditions predisposing to sudden cardiac death: The diagnostic yield and financial implications”. This is the most advanced overview yet from the CRY Fellows to demonstrate the increasing effectiveness and feasibility of cardiac screening for all young people in the UK. The study had wide scope, covering the effectiveness of various screening protocols; exercise levels of athletes and non-athletes; that there is no difference in the prevalence of inherited cardiac disease between athletes and non-athletes; and the cost of population screening based on NHS tariffs. Dr Dhutia’s conclusions suggest that both the importance and the

CRY Fellow Dr Malhotra won an ESC Young Investigator Award for his research on diagnosing inherited heart conditions in footballer adolescents aged between 15 and 17 with an ECG. The 2014 refined criteria – largely developed through CRY doctors’ analysis of thousands of ECGs conducted within CRY’s screening programme – significantly reduces false positive rates in several demographics when compared with older criteria, and Dr Malhotra’s study helped confirm the suitability of the criteria for the adolescent athlete using FA (Football Association) data, reducing false positive rates by around 77% without reducing the detection rate for serious cardiac disease. Dr Malhotra said in an interview for ESC TV about the award: “It’s about being able to showcase what we have done, and push the boundaries further.”

Dr Harshil Dhutia presents his Best Poster Award-winning CRY research

Dr Aneil Malhotra presents his Young Investigator Award-winning CRY research, assisted by Dr Michael Papadakis

www.c-r-y.org.uk

19


BBC Radio 5 live Special CRY were proud to be involved with a high-profile BBC special on sudden cardiac death in athletes, broadcast on Radio 5 live on Tuesday 19 May at 20:30.

“I’m sat here listening to it as a parent of sporting children and it makes you think, and it makes you want to ask questions.” BBC Radio 5 live’s Mark Chapman CRY Patron John Inverdale and Stephanie Hunter had previously recorded a BBC Radio 4 appeal together for CRY in 2011

Image credit: BBC Radio 5 live

CRY Patron John Inverdale spearheaded this hour-long programme following the tragic deaths of three young, elite sportsmen from sudden cardiac arrests in less than two weeks: Belgian footballers Gregory Mertens and Tim Nicot, and Welsh rugby league international Danny Jones. The programme heard from families who have been affected by young sudden cardiac death and specialists at the forefront of current research. Live in the studio for the duration of the programme, CRY Founder and Chief Executive Alison Cox MBE was the lynchpin of the discussion with presenter Mark Chapman, supported by CRY Consultant Cardiologist Professor Sanjay Sharma.

Alison: I would say, four out of five of the days of the week I have a different death, and they’re all like that. They’re not Howie, they’re not necessarily athletes, but they would consider themselves fit and healthy, and death is instant. Mark: Four out of...?! Alison: Four out of five days. I speak every day, on average, to a bereaved parent, sibling or partner. Mark: …Goodness me.

20

In a pre-recorded interview, John Inverdale spoke to Stephanie Hunter, whose first husband, Howard English, and eldest son, Sebastian English, both died suddenly playing rugby (Howard in 1993; Sebastian in 2004) – both due to the same heart defect; arrhythmogenic right ventricular cardiomyopathy (ARVC).

“The vast majority of deaths occur in recreational sports and schoolchildren – in fact 94% of deaths occur in this group – and there is very little going on in grassroots sport and schools; that’s what concerns me the most.” CRY Consultant Cardiologist Professor Sanjay Sharma John was training with Howard when he died and described his memories of that night in October 1993, before Stephanie recounted the subsequent misdiagnosis of Howard’s condition and the “intolerable” consequences for their son Sebastian: “Howard’s death was absolutely terrible, that’s an understatement... but I’ve never felt that there was ever much we could have done for Howie because it was early days [of knowledge of ARVC]... but with Sebastian, I feel he should be alive, and I find it very difficult that he’s dead.”

Alison told of her 20-year fight to raise awareness of inherited heart conditions following the “fluke” diagnosis of her son with ARVC, battling those who thought the hidden phenomenon of young sudden death was impossible (“It was dismissed as being ridiculous… because nothing like that could happen”) and doctors who were convinced young people couldn’t cope with a diagnosis (“Our myheart group are fantastic… they get together, they enjoy it, they normalise their condition because they’ve all got something”).

“Our message is very steady, and it’s positive: get screened.” CRY Founder and Chief Executive Alison Cox MBE Mark Chapman questioned the lack of routine screening for both professional and amateur sportsmen and women in the UK, interviewing Professor Domenico Corrado about the Italian athletic screening programme. Cardiac screening has been mandatory since 1982 for any young person who engages in organised sport in Italy – reducing the incidence of sudden cardiac death in athletes by 90%. Professor Corrado stated: “We now have data, compelling data, that this strategy over the time was successful.” To listen to the programme, please visit www.c-r-y.org.uk/suddencardiac-death-in-young-athletes-abbc-radio-5-live-sport-special

Issue 67 | May to August 2015


CRY Heart of London Bridges Walk 2015 On Sunday 28 June, 1,925 walkers congregated in London’s Victoria Embankment Gardens ahead of the ninth annual CRY Heart of London Bridges Walk. With almost 2,000 participants, it was once again a poignant yet positive occasion – more so this year with the charity marking its 20th anniversary. It was incredibly moving to see so many people coming together to walk in memory of a friend or family member; an opportunity for people to meet others similarly affected. There are many families and friends who have been taking part in this event since its launch in 2007, but the huge numbers of walkers this year meant plenty of welcome new faces too. After a cool start, the crowds geared up for the summer sunshine, although many were unprepared for the sharp showers that appeared at various points throughout the route! From 9am members of the CRY team, as well as lots of enthusiastic volunteers, waited to meet and greet the walkers and embark on the biggest registration mission to date!

As in previous years, so many of the families who had travelled to London for CRY’s flagship event were keen to emphasise to our press team that they would like to make contact with their local media and tell their story in a bid to help raise awareness of CRY and the work we do. Social media moved into top gear very quickly and chronicled the event with live Twitter updates from the very start, building a buzz of interest online. Engagement around the hashtag #HeartOfLondonBridgesWalk with comments, posts and retweets from walkers and supporters along the route kept everyone involved! Molly Schiller – the 16-year-old sister of Max, who died aged 10 in January – took part in a moving and inspiring live broadcast on BBC Radio London the previous day alongside CRY Founder and Chief Executive Alison Cox MBE, which helped raise awareness for both CRY and the Bridges Walk in the capital. Carly Sykes-Blowers – who first became involved with CRY following the sudden death of her husband Paul Sykes in 2005, and who has also been taking part each year since 2007 – accepted our invitation to lead the 2015 event to help mark

www.c-r-y.org.uk

CRY’s 20th anniversary. Carly, her family and friends (including son, Thomas, who was just a baby when his dad died) were first through the gates at 11am. This year’s warm up was again led by fitness instructor and myheart Representative Paula Beck, who was diagnosed with the same condition that had caused the death of her brother, Craig Beck. Paula’s mission is to demonstrate how a young person can live actively with a serious heart condition and that it does not have to restrict you. Water and donated soft drinks and crisps were handed out at Millennium Bridge and the event ended once again at the beautiful Hays Galleria, near London Bridge. Walkers were treated to two uplifting performances during the afternoon by The Adam Street Singers who have been supporting CRY since the previous autumn. All money raised from this event goes towards funding CRY research. To see the full gallery of images from this year’s Bridges Walk please visit our Flickr gallery at www.flickr.com/ photos/cardiacriskintheyoung

21


CRY Heart of London Bridges Walk 2015

22

Issue 67 | May to August 2015


CRY Heart of London Bridges Walk 2015

CRY, as always, is very grateful to all of our dedicated volunteers who helped out both on the day and behind the scenes. Without them we could not run this event. Martin Appleby; Blayne and Robert Beck; Paula Beck; Nigel Bennett; Jenny Boag; Gary Bownes; Lucy Bowyer; José Ramón Caamaño Sobrino; Sue Camilleri; Krisztina Cserhalmi; Charlotte Dempster; Ted Dolan; Michelle, Lianne, Ayda and Freja Frost; Diana Garretts; Shannen Hill; Barbara and Jim Holland; Andy Hunt; Eunice and Carl Johnson; Pat Jones; Bob Lewis; Julie Lockton; Koula Louki; Irena and Gavin McCabe; Rona McCandlish; Wendy Moss; Kirsty Muir; Tim Munyanyi; Carl Naybour; Carol and Tony Nicholls; Hollie Page; Charly Paterson; Jo Pickard; Janette Pollard; Ramila Raval; Pete and Sue Robinson; Christine Rumley; Jagroop Sandhu; Alyson Stokes; Linda Taylor; Becci, Julien and Rowena Upson; Sue and Dave Walton; Marion and Matt Wilson; Gerry Wright; and Modestos Zouvani. We are also grateful to various organisations for their help, advice and support, including Silver Sponsor Unum and Bronze Sponsor ServiceMaster.

www.c-r-y.org.uk

23


Prudential RideLondon-Surrey 100 2015 Congratulations and thank you to the 50 CRY cyclists who took part in the Prudential RideLondonSurrey 100 on Sunday 2 August. This is now the biggest ever cycle event in London! Unlike 2014’s stormy cycle, the day began with a bright, sunny and dry morning – which was a perfect start for more than 25,000 riders taking on the 100-mile course. The route started at the Olympic Park in Stratford, continued south west to Hampton Court, then down through the Surrey boroughs of Woking and Guildford, before taking on the hill climbs of Mole Valley on the way to a spectacular finish at The Mall, Westminster. All 50 CRY cyclists were provided with a CRY-branded cycling jersey to wear

during the ride. This helped to raise more awareness for CRY and a lot of people commented on how fantastic they looked. CRY cyclist David Gridley said, “The CRY jersey is fabulous and everything I hoped it would be”. The CRY team, including Patron Matt Wells, were encouraged and supported along the route at Kingston, Dorking, Wimbledon and at the finish by CRY staff and volunteers. CRY supporter Nicola Quelch tweeted, “Your cheer squad was the loudest and the best, I’m sure it lifted all your cyclists today on the RideLondon :)”. Meanwhile, another CRY team began to prepare the CRY reception room at the Green Park Hilton Hotel with refreshments, bunting, banners, balloons, display boards and massage couches in preparation for the CRY cyclists’ return.

Executive, came along for part of the day to meet many of the cyclists and their families. It was wonderful to meet so many of the CRY team – 21 of the 50 cyclists returned to the hotel. We would like to say a big thank you to CRY volunteers Martin Appleby, Nigel Bennett, Jenny Boag, Lucy Bowyer, Nichola Carter, Geneva Ellis, Diana Garretts, Don Granner, Terry Granner, Dylan Taylor, Theresa Taylor, Becci Upson, Caitlin Upson, Eleanor Upson, Rowena Upson, Katie Wilson and Wanda Wilson. Thank you also to our volunteer massage therapists Edel Casey, Slawomir Ornarowicz and Leonie Lawson. Thanks to the Green Park Hilton Hotel for hosting our post-ride reception and for making CRY feel very welcome, as always.

The cyclists started to arrive at the hotel from 10:45 onwards and were welcomed with clapping and cheers. They were able to enjoy a well-deserved massage and shower along with some snacks and refreshments. The massage and showers seemed to go down very well with the cyclists. Alison Cox MBE, CRY Founder and Chief

24

Issue 67 | May to August 2015


Prudential RideLondon-Surrey 100 2015

www.c-r-y.org.uk

25


Prudential RideLondon-Surrey 100 2015

CRY cyclists were: Sarah Bassett

(in memory of Kris Cook)

Marcus Bateman Paul Bayfield

David Gridley

Robert Hubbard

Andrew Gritton

Andy Hunt

(in memory of Jack Sheriff)

(in memory of Alex Hubbard)

(in memory of Kris Cook)

Nick Hallwood

(in memory of Matthew Hadfield)

Peter Baylis

Hugh John Harvey

Andrew Lougher

(in memory of Ben Daniels)

Simon Bullock

(in memory of Jordan Bullock)

Ian Cairns Andy Crinson

(in memory of Jennifer and David Paul)

Nathan Curran Myles Davidson

(in memory of Arabella Campbell)

Mark Dicker

(in memory of Malcolm Reed)

Richard Feil Niall Fogarty

(in memory of Jennifer and David Paul)

Sarah Gilmore

(in memory of Alex Hubbard)

Andrew Hassall

(in memory of Kris Cook)

Jessica Hassall

(in memory of Kris Cook)

Jonathan Hedge (in memory of Alex Hubbard)

Lucy Parker

(in memory of Kris Cook)

Gordon Paul

(in memory of Jennifer and David Paul)

James Perrins

(in memory of Kris Cook)

(in memory of Tom Fleetwood)

Emma Marcarian

Gary Queen

(in memory of Kris Cook)

Fab Marcarian

(in memory of Kris Cook)

Danny Margerum (in memory of Tom Fleetwood)

(in memory of David Paul)

Tim Rampton

(in memory of Yasmin Caldera)

Stephen Rowbotham

Joanne Matthews

Ian Spence

(in memory of Kris Cook)

(in memory of Oliver Griffin)

Ray Hince

Alan Mayger

Andrew Tait

Jamie Higgins

(in memory of Nicola Jill Hince)

Miriam Hodgson

(in memory of Marie Manhire-Clark)

Sean Horkan

(in memory of Joseph Horkan)

Marie Howse

(in memory of Kris Cook)

(in memory of Claire Mayger)

Frank McGarry Stephanie Meaney (in memory of Philip Meaney)

Lee Munday

(in memory of Alex Hubbard) (in memory of Kris Cook)

Nicola Tait

(in memory of Kris Cook)

Sarah Thumwood

(in memory of Kris Cook)

Matt Wells

(in memory of Kris Cook)

Anthony Williams

Sam Ottolangui

Antony Wootton

(in memory of Kris Cook)

The next Prudential RideLondon-Surrey 100 will take place on Sunday 31 July 2016. Please contact events@c-r-y.org.uk for further information.

26

Issue 67 | May to August 2015


Our Fundraisers In memory of

Philip Abraham

Christopher Abraham, Mary Abraham, Richard Abraham, Marlene Beveridge, Hilary Prince, Janet Gotham, Gillian Kiernan, Eileen Batchelor and Dawn Woodsford took part in the CRY Heart of London Bridges Walk 2015 and raised £275.

In Memory of

Rob Allan

Conservative Club in Derby donated a cheque for £100. The Noah’s Ark pub in Derby raised £122 by raffling an Easter hamper. At the weekend we raised £106 at the South Derbyshire Saddle Club by doing a cake and tombola stall. The rest of the money comes from donation boxes and very kind friends.”

Liam Mullen raised £3,719.50 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Alexandra Allen and Jason Nixon

Maxie Allen raised £1,315 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Steven Allseybrook

• Sue Allseybrook took part in a 5K walk with friends and family and raised £222: “Friends and family did a 5K walk around Darley Park in Derby on June 28. We called it our Derby Bridge to Bridge Walk. We raised £222 and had a really great time.”

In Memory of

Shaun Henry Appleby

Chloe Appleby sent in a donation of £150.

In Memory of

Simon Askew

• Sue Allseybrook sent in total donations of £1,456.64: “William Suant and Kelly Smith raised £424 between them by taking part in a skydive event. A fishing event raised £211 and was won by Andy Reddy who had the heaviest catch. The

www.c-r-y.org.uk

• Mrs S Askew sent donations of £260 received in lieu of floral tributes for her son. • Laura Barlow and Emma Gueran took part in the CRY Heart of London Bridges Walk 2015 and raised £2,088.

27


Our Fundraisers In Memory of

Terry Atkinson

Clair Gorse took part in the Resolution Run and raised £125.

range of other items and then an empty shop was kindly donated to our cause for a week, which we stocked from the donations. Many friends and family willingly did shifts throughout the week helping sell stuff and restocking constantly. We can’t thank everyone enough for helping out and also the people who so generously came and bought our stock, making our event such a success.”

In Memory of

Stuart and Rosemary Attridge

Ewell Rotary donated £250 and Moreford Lodge donated £100, making a total raised of £350.

In Memory of

Shetemi “Shay” Ayetigbo

Maureen Gardner sent in a donation of £100.

In Memory of

Audrey Norma Ayling

Mrs J Humphries sent donations of £100 received in lieu of floral tributes for her mother.

In Memory of

Alan Bain

• Kathleen Bain and Nancy Gibson sent in £6,571, including £5,740 raised through a pop-up shop: “Our friends and family helped us set up our pop-up shop, spending a lot of weeks collecting and storing lots of very kindly donated pre-loved clothing and a huge

28

“Gathering to draw raffle including a CRY cake after a hard week’s work at the pop-up shop. From left to right, Lotty Romanizyn, Ryan Bain, Fran Dearness (who kindly donated the use of the shop), Hannah, Kathleen Bain and Nancy Gibson, Orkney Heart Screening Organiser”

• Rebecca Scott sent in a donation of £220. • Kathleen Bain sent in £300 raised from Olive Heddle’s raffle. • Georgie Mackenzie at Scottish Sea Farms sent in a donation of £7,000. • Sian Thomas sent in a donation of £100. • The 4th Kirkwall Brownies held a sponsored silence and raised £609.50: “The 4th Kirkwall Brownies held a sponsored silence on 12 March 2015 to raise funds for CRY’s Alan Bain Memorial Fund. The girls, who are aged 7–10 years, asked friends and family to sponsor them to keep quiet for an hour – not an easy task for a giggly group of girls, but they all managed it! The amazing total of £609.50 was collected by the 19 girls who took part and will be used to help bring the screening unit to Orkney in 2016.” Lorraine Thomson, Assistant Unit Leader.

Issue 67 | May to August 2015


Our Fundraisers In Memory of

Andrew Baker

Martyn Critchlow sent in £500 on behalf of Greasbrough United Church.

In Memory of

Paul Baker

Clare Ellis-Brown took part in the Milton Keynes Everyday Hero Half Marathon and raised £415: “I ran to raise funds for CRY in memory of my cousin Paul Baker who passed away on 1 May 2009. When I finished I was pretty exhausted but elated. At mile 9 I started to feel a bit of pain and miles 11–13 felt like five! I managed to get through it and finished in 2 hours and 37 minutes. The thought of why I was running and the charity I was running for just kept me going (along with lots of training of course).

in the Virgin Money London Marathon 2015.

In Memory of

Lewis Barry

Mark and Carol Barry sent in total donations of £4,075: Spadger’s Ride, where 1,000 cyclists took to the road in Lewis’s memory, raised £3,000; a raffle held at the final round of the Nutcracker Mountain Bike Series raised £1,000; and personal donations amounted to £75.

In Memory of

Daniel Bartle

• David Thomas raised £835.60 through a concert: “The idea for the event originated through members of a local rugby club, Nantymoel RFC, for whom Daniel’s brother Tom plays. The members had already successfully raised funds for another good cause and thought it appropriate to extend this support to Tom’s chosen charity also.

“I absolutely loved every minute of it and look forward to my next challenge. Maybe the London Marathon… Watch this space.”

In Memory of

Cecilia Barriga

• Mike Fleet sent in total donations of £396, including: £139 from the Probus Club of Sevenoaks in respect of a talk; £27.50 from Purley Oaks School in respect of a talk; £100 from the Croydon Harriers; and £90 raised from kit donated by a former member of the Croydon Harriers. • Matthew Kiernan raised £365 through taking part in the Virgin Money London Marathon 2015. • Rochelle Bisson raised £2,004.20 through taking part

www.c-r-y.org.uk

29


Our Fundraisers “The concert, which involved only local artists, was held at a fairly compact local venue and could easily have sold out several times over. The night was undoubtedly a success with a definite ‘feel good’ factor and the excellent feedback has encouraged us to look at holding similar future events.” David Thomas. • Donna Bartle sent in £439.50 raised through a charity night.

In Memory of

Alex Bates

Graham Bates and Andrew Taylor sent in total donations of £480 on behalf of Alex’s colleagues at Atkins.

In Memory of

Matthew Beadle

• Lynne and Tony Beadle sent in £101 raised through a CRY collection box at the reception of Kelsey Publishing. • Michele Jones, Chris Jones, Jackie Costello, Ellen Costello, Colin Costello, Sharon Hurlock, Sian Hurlock, Valerie Collins, Vicki Lippett, Fiona Coppard, Jayne McGibbon, and Jackie Baulf from Connexions Cuisine took part in the CRY Heart of London Bridges Walk 2015 and raised £120 in memory of their former colleague. • Ellen Costell, Functions and Events Manager at Connexions Cuisine, sent in total donations of £1,730 raised in respect of their 25th year celebrations: “Our ball was a fantastic evening held at St Barnabas Church in Beckenham. Over 120 guests attended. We auctioned off three Connexions items and they were so popular that two of the items were bought twice, enabling us to raise more than expected for CRY!”

In Memory of

Paul Beard and Harry Faulkner

Keith Preedy raised £3,090 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Craig Beck

Paula Beck, Anna Richens, Jennifer Perry, John Perry, Debbie Rowlands, Lois Tabor, Dave Tillyer, Karen Tillyer, Charly Paterson, Patrick O’Connor and Kat Wilson took part in the CRY Heart of London Bridges Walk 2015 and raised £100.

In Memory of

Graeme “Tinka” Bell

Gemma Cannell sent in a donation of £200 raised by members of the 150 Club at West Denton Fire Station Social Club.

In Memory of

Graham Bennett

Glynis Bennett raised £1,850 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Richard Andrew Bethall

Mr and Mrs W Jones sent in total donations of £345 received in lieu of gifts at their golden wedding anniversary and at the silver wedding anniversary of Mr and Mrs J Bethell.

30

Issue 67 | May to August 2015


Our Fundraisers In Memory of

Steven Bicker

• David Bicker took part in the Cambridge Half Marathon and raised £415. • Daniel Garrity raised £2,210 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Lydia Bird

Cathy Bird gave a talk about CRY to the Inner Wheel Club of Llandaff and passed on a donation of £650.

running through East Cowes, Ryde, Bembridge, Sandown, Ventnor, Blackgang Chine and finishing in Brighstone. After spending the night camping the group completed the remaining 31 miles back to Cowes Enterprise College, taking in the breathtaking views of Freshwater and The Needles.

In Memory of

Graeme Blenkinsop

• Lesley Bryant sent in £100 to commemorate Graeme’s 30th birthday. • Matthew Bowler took part in the Isle of Wight Challenge and raised £5,168.95: “A group of friends ran 70 miles around the Isle of Wight in two days in memory of Graeme Blenkinsop. Graeme, a former Cowes High School pupil, died in 2006 aged 21 and would have been 30 this year. Due to the special birthday, the group felt they should complete a challenge in order to raise money to fund CRY’s mobile screening unit to visit their former school. “Eight individuals started the run and six managed to finish. The weather was beautiful all weekend, perhaps even too warm. Whilst running the group chatted about Graeme, reminding each other why they were completing the challenge in order to try and forget the blisters appearing on many people’s feet. The group set off from Cowes Enterprise College, completing 39 miles on day one,

“Throughout the weekend the runners were supported by an amazing group of family members and friends, without whom they would not have been able to complete this mammoth challenge.”

In Memory of

Sarah Booth

• Robert Booth sent in £200 donated by colleagues in respect of his recent retirement. • Ita Booth sent in £350 from employees at Invest Northern Ireland.

In Memory of

Daniel Boreham

Chelmer Valley High School held their annual Teachers v Sixth Formers Football Match and raised £219.77.

www.c-r-y.org.uk

31


Our Fundraisers In Memory of

Jack Boulton

Lis Evans sent in £390 raised at the Keynsham and District Tangent Club.

prizes! It was a great day of fun that was topped off with some well-earned pizza on the pitch – a day that we will definitely be doing again next year!”

In Memory of

Ian Bowen

Gary Watson sent in £460 raised through a football predictor.

In Memory of

Mark Britton

Andrew Britton sent in £820 on behalf of Mark’s mum who organised an afternoon tea.

In Memory of

Emma Broad

• Ellie Clements took part in the Surrey Half Marathon and raised £145. • James Culnane sent in £709.50 raised through the Surbiton High School “Hockathon”. • Edward Hilton raised £3,917 through taking part in the Virgin Money London Marathon 2015. • Chloe Wright sent in £375 raised through the University of Nottingham Ladies Hockey Club (NULHC) summer hockey tournament: “On June 10 this year the NULHC girls took part in what we called our Premier League Summer Hockey Tournament with all proceeds going to Cardiac Risk in the Young. For me personally, CRY is close to my heart as I lost my best friend Emma to sudden death syndrome, so it was great that all the girls came out to support and do what they do best! “We all dressed up in some great costumes with best fancy dress winning some

32

In Memory of

Ben Broadbent and Craig Burling

Bill Broadbent sent in £820 raised by Myton Warriors Rugby Club in memory of his son Ben, who had previously fundraised for CRY in memory of Craig Burling.

In Memory of

Alex Brown

• Jan Brookshaw sent in total donations of £710. • Sue Brown, Rebecca Marshall, Rachel Dingle, Jan Brookshaw, Julie Marshall, Tom Marshall, Mitchell Marshall, Hannah Bytheway, Adam Littleton, Jill Conry, Daniel Hill, Tarryn Smith, Rebecca Hill, Amy Lane, Emma Weston, Louise Malkin, Kelly Rooker, Barry Keough, Janette Keough, Beverley McBean, Lyndsay Stephenson, William Young, Ashley Blakemore, Mark Stevenson, Laura Green, Karen Ward, Nicola Green, Samuel Whitehouse, Pat McAuliffe, Russell Higgs, Matthew Pearson, Jennifer Taylor, Steven Taylor, Bradley Simpson, Leon Miles, Sarah Starkey, Elizabeth Blakemore and Giles Hopgood took part in the CRY Heart of London Bridges Walk 2015 and raised £7,929.

In Memory of

David Brown

• Helen Wilson at Eastleigh Borough Council sent in £500 raised through the Diamond Ball.

Issue 67 | May to August 2015


Our Fundraisers In Memory of

• Laura Miles sent in £767.05 raised through a charity day at Ageas Insurance:

Dr Jenny Bucknell

“Another successful charity day for Cardiac Risk in the Young took place on Friday 26 June 2015. Organised by Laura Miles for the second year running, the day was a huge success and the total raised was £767.05.

• Veronica Bucknell sent in a donation of £2,275.

Club.

• Hillary and Bill Durrant forwarded a donation of £250 from Blackmore Vale Lions

In Memory of

Jordan Bullock

Sophie Semmence sent in £143 in respect of the Isle of Wight Challenge.

In Memory of “Activities included a yummy cake sale, pin the heart on the tin man, football blackout and defibrillator training sessions. A big thank you to everyone who donated and helped with the day!”

In Memory of

Dominic Brown

Jamie Brown took part in the Vitality Reading Half Marathon 2015 and raised £4,132.22.

In Memory of

Katrina Brown

CRY Patron Bill Neely raised £4,024.60 through taking part in the Virgin Money London Marathon 2015.

www.c-r-y.org.uk

Peter Burdon

Linsey O’Neill sent in £850 raised by Aidan’s Angels from their performance of variety show “The Show Must Go On”.

“In September 2010, our lovely son, Aidan, left on his bike for school. He never made it. He was just 12 years old and to lose him to a senseless accident is heart-breaking. In the four years following his death, our very dear friends, Kim and Peter, were always there for us and in Aidan’s memory we formed ‘Aidan’s Angels’, performing to raise money for charity. We were all completely devastated when, in November 2014, Peter died very suddenly from sudden adult death syndrome. He was just 35 and leaves his devoted wife, Kim, and their two gorgeous young daughters. “We wanted to do something in tribute to Peter, and ‘The Show Must Go On’ seemed the perfect way to celebrate his life and support some great causes. The show was a great success, leaving our audiences buzzing with laughter and quite a few tears and raising over £2,000 which we

33


Our Fundraisers have split between CRY, The Mtitu Foundation and Lytchett Matravers Village Hall.” Steve and Linsey O’Neill.

In Memory of

Nathan Butler

• Ms C Ibbs sent in a donation of £100. • Anthony Davies raised £3,051.70 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Nathan Butler and Barbara Tatton

Mr and Mrs Chris Tatton sent donations of £215 received in lieu of floral tributes for Chris’s mum, Barbara.

In Memory of

Robert Burns

Doreen Burns sent in £1,150 raised through a five-a-side football match, cake stall and tombola.

In Memory of

Helen Button

Mrs S Colvin sent donations of £495 received in lieu of floral tributes for her sister.

In Memory of

Yasmin Caldera

• Jennifer Castle at Laser Vision sent in a donation of £150. • Nicola Caldera sent in a donation of £1,070: “This money was raised at Stephen and Julia Holden’s ‘Sing Along with Steve’ evening, which was a fantastic night enjoyed by invited guests from Walberton, West Sussex. Thank you for donating the proceeds of the evening to Yasmin’s fund.”

In Memory of

Alex Camilleri

Sue and Steve Camilleri sent in a donation of £1,000.

In Memory of

Arabella Campbell

• The ACT Foundation sent in a donation of £290.56.

34

Issue 67 | May to August 2015


Our Fundraisers • Langley Park School for Girls Year 9 students raised £654.21 by having a cake and sweet sale in school. • Ian Frankland raised £120 through taking part in the Bupa London 10,000 2015. • Elly Brindle raised £2,901.20 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Pippa Chowne

Lisa Chowne, Andrew Chowne and Alison Tumbler took part in the CRY Heart of London Bridges Walk 2015 and raised £200.

In Memory of

Cheryl Christopher-Webber

In Memory of

James Campbell

• Tom Pervis, Bethany Flemming and Lana Faidulla from Durham University Charities Committee (DUCK) participated in the November jailbreak event and raised £183.13. • Karen Campbell sent in total donations of £1,877.87: MacMillan Academy donated £1,417.87; St Mary’s Youth Group donated £100; and a Burns Night Supper held by the Masons of the Marwood Lodge in Redcar raised £360. • Carole Johnson sent in a donation of £110 representing members’ weekly donations at Acklam Slimming World Club, Middlesbrough.

In Memory of

Adele Cashman

Tim O’Donovan raised £1,679.20 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Darren Casement

CRY volunteer Martin Collins collected total donations of £1,660 from Tracey Greeves, Darren’s sister; £1,530 in respect of a fundraising evening, and £130 raised by Sandra Orr who completed the Belfast Marathon.

In Memory of

John Chapelhow

Judith Chapelhow sent in £1,725 raised through Skelton YFC’s charity duck race.

www.c-r-y.org.uk

• Niamh Goodyer raised £260 through taking part in the Bupa London 10,000 2015. • Laura McLennan raised £695 through taking part in the Bupa London 10,000 2015 and £115 in respect of the CRY Heart of London Bridges Walk 2015, making a total raised of £810.

In Memory of

Katrina Christopher and Cheryl Christopher-Webber

• Vivienne Christopher sent in £150 raised in respect of her recent talk at the Leyland Lions. • James Webber, Vivienne Christopher, Laura Gibbs, Iren Forgie, James Forgie, Alan Webber, Marian Webber, Harry Gibbs, Philip O’Rourke, Katharine Merchant, Christopher Merchant, Nicola Richardson, Stuart Richardson, Connor Lomax, Anna Lomax, Mark Griffin, Victoria Yeldham, Dawn Welch, Anthony Ashcroft, Jackie Stoves, Julia Dickinson, Rodney Dickinson, Andrew Dickinson, Claire Davies, Gareth Davies, David Merchant, Daphne Merchant, Lorraine Heath, Wilawan Horsham, Maggie Longstaff, Gary Longstaff, VickyMarie Ravenscroft, Tracy Boegli-Taylor, Bert BoegliTaylor and Lindsey Millar took part in the CRY Heart of London Bridges Walk 2015 and raised £1,620.

In Memory of

Tom Clabburn

• Linda and Gottfried Panzer took part in the Footsteps of Hannibal – Walking the Alps event in 2010 and raised £1,170. • CRY Patron Ben Brown took part in the Royal Parks Foundation Half Marathon and raised a total of £1,090:

35


Our Fundraisers “It was wonderful to be able to run my very first half marathon for CRY and in the memory of Tom Clabburn – son of my friends Claire and Paul – who tragically died seven years ago. I’m thrilled to have raised more than a thousand pounds for CRY in his name and to have run it in a decent 1:49:21 – the weather was kind, the route was beautiful and the training kicked in!”

In Memory of

Tom Clabburn and Claire Prosser

• Sue Howells sent in £806 raised from a book sale at Munson’s Café. “A book sale for Tom and Claire’s fund raised £806 for CRY outside Munson’s coffee shop, Ealing, on Saturday 16 May. “Organiser Sue Howells said: ‘Claire’s friends were delighted with the amount raised and to continue the book sale tradition that she had begun. After a cloudy, chilly start, the sun shone and brought out plenty of buyers. I’m very grateful to all those who contributed so generously and to all who helped.’ Our thanks too, to Sue and to all those who gave their time on the day.” Paul Clabburn.

• Lucy Thorpe raised £1,042 through taking part in the Virgin Money London Marathon 2015. • Elaine Okyere raised a total of £255 through taking part in the Bupa London 10,000 2015. • Peter Sibley sent in £150 raised from a raffle held by the “Bath Chaps”. • Vicky Pearson sent in £200 raised through donations made at Munson’s Café. • CRY Patron Ben Brown raised £1,265 through taking part in the Virgin Money London Marathon 2015. • Paul Clabburn, Ellen Clabburn, Gordon Prosser, Neil Prosser, Samantha Prosser, Helen Barnes, Tim Carpenter, Baerbel Carpenter, Andy Howells, Sue Howells, Peter Matthews, Claire Matthews, Grace Matthews, Evie Matthews, Victoria Pearson, Alan Stewart, Joely Langston, Charlie Pearson, George Pearson, Grace Moloney, Ben Stewart, Rebecca Stewart, Kate Stewart, James Ballantyne, Anne Marie Reilly, Fiona Stewart, Heather Stewart, Lindsay Janser, Poller Manser, Sophie Manser, Alan Rodney, Helen Lewis, Stephanie Smith, Monica Bramwell, Emma Ambrose-Crow, Alastair Clunas, Mike Scott, Alison Montgomery, Justine O’Driscoll, Gina Pierce, David Bentley Pierce, Lucy O’Driscoll, Kate Riley, Robin Gould, Linda Panzer, Gottfried Panzer, Timur Onder, Suzanne Fletcher, Mervyn Fletcher, Kirsty, Lisa Neauerson, Tess Gomm, Jonathan Pigott, Maria Eager, John Stanton, Robert Dawson, Isabel Turner, Alex Smith, Martin Hale, Susan Ellis and Jacky Hems took part in the CRY Heart of London Bridges Walk 2015 and raised £445.

In Memory of

Tom Clabburn, Claire Prosser and Matt

“From left to right: Debbie, Elaine Lacey, Alison Montgomery, Isabel Turner, Sue Howells, Faith Howells”

• Stuart Beattie sent in a donation of £500 raised through fundraising at LVS Ascot School. • Ingrid Jack sent in a matched funding donation of £1,000 from her employer, Microsoft, in respect of a parent concert at LVS Ascot School. • Joanne Vickers sent in £2,500 from the Enterprise Holdings Foundation.

36

Ann Huybrechts, Andrea Roots, Rachel Currie, George Haskins, Lesley Hopkins and Karen Wood took part in the CRY Heart of London Bridges Walk 2015 and raised £1,440.

In Memory of

Matthew Thomas Clark and Brian David Clark

Mary Clark sent donations of £225 received in lieu of floral tributes for her husband, Brian.

Issue 67 | May to August 2015


Our Fundraisers In Memory of

In Memory of

Jill Clark sent in £5,525 raised through a football match in memory of her husband:

Christopher Clay sent in £500 raised through the second Investec Ashes Cycle Challenge:

Wayne “Nobby” Clark

Nick Clay

“Around 500 people turned up to support the event on 6 June 2015 to raise money in memory of Wayne Clark. Wayne played football for local teams all his life and was helping manage the local Longhope side at the time of his death. Four teams of past and present football players donned their kit to play against a team of ex-professional players. The day was a huge success, finishing off with a live band and a BBQ.”

“Left to right: my pal and fellow fundraiser, Tim Crutchley; Darren Gough, celebrity ride ambassador; and me on the right!”

In Memory of

Stephen Connor

Frank McMahon at Whittle and Clayton Cricket Club sent in £242 raised through a charity cricket match between Whittle CC and White Coppice CC.

In Memory of

Bruce Cousins

Jackie Cousins held collectibles and plant stalls and sent in a total of £588.

“Wayne’s brother Tracy Clark and his two nephews Rob and Steven”

www.c-r-y.org.uk

37


Our Fundraisers In Memory of

Matthew Cragg

• Tiffin School in Kingston upon Thames sent in £1,047.36 raised through a mufti day. • Wendy Leskin sent in a donation of £200. • A Schaverien at The Albert Arms in Esher sent in £500 raised through a charity Grand National draw.

• Callum Fraser raised a total of £1,709.67 through taking part in the Brighton Marathon 2015.

• Jack Bozson, Treasurer at Leeds University Union History Society, sent in a donation of £854.35:

• Joe Barnes took part in the Vitality Run Hackney Half Marathon and raised £2,023.78.

“We recently held an event that we named HistFest in order to raise money for CRY on May 9. We had a number of acts on throughout the day with musicians playing and an evening DJ set. It was a huge success with over 200 people attending and our members and their friends absolutely loved it.”

• Trudy O’Keeffe raised £650 through a sale at the Claygate Centre for the Community:

“Matt Cragg graduated from history at Leeds in July and sadly passed away in October. We had live music all afternoon and evening, and also offered a bar tab, a bouncy castle, food, face painting, and games.” Alex.

“The event took place on Thursday 9 July in the morning at the Claygate Centre for the Community, it was extremely well attended and supported by our centre members, volunteers, friends and Matthew’s mother Debbie and grandmother Pat also came to support the event. Debbie kindly and bravely said a few words about Matthew and spoke about your charity and the wonderful work that you do, and how amazingly supportive you have been to them as a family since the unbelievably sad loss of their beloved son.

“The event kicked off at 10am, we had a cake sale, plant stall, bric-a-brac and a raffle. The community really got together by not just giving generously on the day but also donating raffle prizes, cakes, unwanted gifts and, most importantly, time. We raised a grand total of £650. The

38

Issue 67 | May to August 2015


Our Fundraisers In Memory of

event really brought the community together and hopefully raised a greater awareness of the good work your charity does.”

Matthew Cragg and Sara Pilkington

• Maria Drye raised £4,625 through taking part in the Virgin Money London Marathon 2015. • David Jackson raised £2,420 through taking part in the Virgin Money London Marathon 2015. • Debbie Cragg, Paul Cragg, Harry Cragg, Patricia Lambert, Philip Cragg, Nita Cragg, Paul Lambert, Sue Gurteen, Barry Gurteen, Nick Gurteen, Ben Cragg, Charlotte Jackson, Andrew Kilgour, Binkie Maitland, John Maitland, Tom Maitland, Rachel Maitland, Ellie Maitland, Sarah Marsland, Peter Ford, Moira Ford, Clare Ford, Michael Ford, Louise Patten, Hugo Patten, Harry Patten, Claire McQuade, Bob McQuade, Ryan McQuade, Jake McQuade, Suzan Baker, Dominic Baker, Amelia Walker, Charlie Ambidge, Caroline Godson, Kate Emerton, Liz Emerton, Sandra Pajak, Zac Pajak, Sally Moxon, Jon Moxon, Amy Moxon, Alice Moxon, Ella Moxon, Karen Mitchell, Phil Mitchell, Oliver Baker, Emma Baker, Nicky Smart, James Smart, Julie Kelford, Alex Halse, Amanda Keefe, Shelley Burton, David Burton, Margaret Grace-Swindell, Mark Swindell, Henry Swindell, Cecilia Swindell, Louis Swindell, Sally Saunders, Mark Saunders, George Saunders, Louisa Saunders, Tessa Mays, Chris Mays, Olly Mays, Nick Mays, Christian Mays, Patricia Williams, Patrick Williams, Brian Williams, Alice Tilley, Suzanne Goggin, Ryan Goggin, Helen Vartevanian, Robert Vartevanian, Alex Vartevanian, Alison Bownes, Jack Bownes, Andrew Bownes, Annie Bownes, Brenda Gazzard, Hannah Gazzard, George Gazzard, Sarah Fielding, Jennifer Saunders, Rob Saunders, Ryan Saunders, Rebecca Saunders, Niall Saunders, Diana McKay, Adrian Fawcett, Tim Fawcett, Clare Fawcett, Suzanne Mumford, David Mumford, Gareth Powlson, Wendy Leskin, Lynton Boardman, James Boardman, Benjamin Boardman, Jo Hooper, Alistair Hooper, Joe Hooper, Sally Ann Rosier, John Rosier, Emma Rosier, Ginette Manning, Chris Manning, Oliver Manning, Gary McNish, Mandy NcNish, Elliot McNish, Callum McNish, Charlotte Jackson, Maria Drye, Natalie Drye, George Drye, Veronica Drye, Stephanie Tutty, Samantha Tutty, Brian Hornsby, Janine Crawford, Claire Taylor, Quentin Taylor, Dee Vanstone, Nigel Vanstone, Jess Vanstone, Kyra Vanstone, Nicole Vanstone, Emily Pasquale, Toby Bentley, Carly Pilson, Jenny Cropper, Philip Cropper, George Cropper, Angus Cropper, Jennifer Pike, Nick Pike, Oliver Pike, Tom Pike, Ellie Pike, Joey Lalic, Grace McGeehan, Jessica Brown, Fiona Brown, Sarah Davidson, Vincent Barnes, Janiece Swayne, Jenny Mith, Eleanor Forder, Peter Bray, Marion Romaines, Alex Keefe, Julian Swayne and Oliver Patel took part in the CRY Heart of London Bridges Walk 2015 and raised £1,150.

www.c-r-y.org.uk

Julie McGeehan and Sandra Pajak organised a summer party and raised £4,317.60: “More than 200 people attended the CRY Summer Party at Henry’s Grill in Esher on June 11. The warm summer’s evening got off to an enjoyable start with live music from The Whiskey Thieves, Zac Pajak and Max Wild. Then Lili McGeehan, whose friend Sara died three years ago aged 21, spoke about the work that CRY does, and Debbie Cragg, whose 21-year-old son Matt died in October 2014, spoke about her own family’s experience, and urged young people to take advantage of CRY’s preventative screening programme.

“Freddie McGeehan, Ruaridh Kelly, Cameron McGeehan, Julie McGeehan”

“A lively auction of some superb prizes – including a signed Manchester United football shirt and a signed Proudlock/ Made in Chelsea shirt – raised over £1,000. There was also a raffle with more than ten fabulous prizes – and then the dancing continued into the early hours, courtesy of DJ Funktion. “‘Several local families have had their lives touched by the sudden death of a young person,’ explained Julie McGeehan, one of the organisers, ‘and so we wanted to provide an opportunity to bring people together, to catch up with friends and have some fun – but at the same time to remember those young people, and to raise some

“Max Wild and Zac Pajak”

39


Our Fundraisers money for a cause that’s close to our hearts. It was a huge success – and hopefully we’ll do it again next year.’”

In Memory of

Freya Rose Dalrymple

• William Dalrymple sent in £428.16 raised from various fundraising events at Kirkwall Police Station. “£428.16 was donated by my work colleagues at Kirkwall Police Station where I am an administrative assistant – this money was raised through a Christmas hamper from Christmas 2014 and the rest from baking which was sold to raise money in Freya’s name also.” Ingrid Dalrymple. • William Dalrymple sent donations of £3,154.44 received in lieu of floral tributes for Freya. “Ollie Baker, Harry Cragg, Pete Bray”

In Memory of

Richard Credland

Sandy Credland and Wendy Crosby took part in the CRY Heart of London Bridges Walk 2015 and raised £150.

“The figures of £2,654.44 and £500 were very kindly donated by family, friends and members of the local community in Kirkwall, Orkney, at Freya’s funeral.” Ingrid Dalrymple. • Ingrid Dalrymple sent in £555.33 raised through the sale of carrier bags at Papdale stores.

In Memory of In Memory of

Jonathan Crowhurst

David and Mary Crowhurst took part in the CRY Heart of London Bridges Walk 2015 and raised £100.

In Memory of

Robert Crozier and Donald Debono

Trevor Ward sent £390.90 raised from all ex-GICL Croydon staff.

In Memory of

Stuart Cutler

Michele and Jennifer Elder sent in a donation of £200.

Freya Rose Dalrymple and Sylvia Aitchison

Ingrid Dalrymple sent donations of £124 received in lieu of floral tributes for Sylvia Aitchison.

In Memory of

Ben Daniels

• Scott Appleyard raised £1,193.51 through taking part in the Virgin Money London Marathon 2015. • RBS/Coutts sent in a matched giving donation of £250 in respect of Janette Chattaway who supported Peter and Dianne Mendham’s Big Heart Bike Ride in India. • Helena Daniels sent in a donation of £820 raised by Park Langley Townswomen’s Guild.

In Memory of

• Hayes Kent Townswomen’s Guild sent in a donation of £125.

Joyce Dale held a raffle on a day trip to Gloucester Docks and raised £100.

• Phil Coady, President of the Rotary Club of Bromley, sent in a donation of £2,500 representing the club’s contribution to cardiac screening.

Andrew Dale

40

Issue 67 | May to August 2015


Our Fundraisers • Dianne and Peter Mendham took part in the Big Heart Bike Ride in India and raised £440. • Jackie Baker sent in a donation of £3,794.84 raised by the Why Not Run event. • Antony Wootton at Basepoint Centres, Dartford, sent in a donation of £5,000 in respect of the Why Not Run event.

Matthew Golf Day raised £2,890: “Big thank you to everyone who supported this event and to our tournament sponsors, IPS Investments. We raised an amazing £2,890 to go towards screening young hearts in Shropshire. The winning team, Alberbury Cricket Club, led by Simon Lewis, were this year’s winners.

• Helena Daniels sent in total donations of £635.65; the Bromley RFC and Old Elthamians Junior RFC raised £99.34, and a screening event at the Old Elthamians Cricket Club raised £536.31. • Steve Wolfe raised a total of £1,150 through taking part in the Brighton Marathon 2015.

In Memory of

Matt Daniels

Clare Lloyd raised £717 through taking part in the Virgin Money London Marathon 2015.

“IPS generously donated a golfing holiday for four at the Roda Beach Golf Resort for a sealed bid auction, this too was won by the Alberbury cricket team and raised £1,255 for the charity. We look forward to welcoming more teams to Mile End next year for the CRY for Matthew 2016 tournament.”

In Memory of

Neil Darby

Heather Darby sent in £750 raised at a charity ball.

In Memory of

Conor Delaney

James Drewry sent in £555 raised at a football match by Conor’s schoolfriends and family.

Images credit: Russell Davies

• Sue and Chris Dewhirst raised £550 through “Cakes, Coiffures and CRY”:

In Memory of

Vincent Derham

Veronica Derham sent in total donations of £353.50.

In Memory of

Matthew Dewhirst

• Sue and Chris Dewhirst sent in total donations of £4,490; a screening day in Nesscliffe raised £1,600, and the CRY for

www.c-r-y.org.uk

41


Our Fundraisers “We had the greatest of afternoons and big thanks to all the models and especially to Royston Blythe and Nick Malenko who made it so great.

in the Virgin Money London Marathon 2015. • Debbie Dixon sent in total donations of £962.33 raised at a recent screening day.

In Memory of

Martin Doig

Jenny Burnley took part in the Edinburgh Half Marathon and raised £126.20. “The afternoon tea at The Goldstone was second to none, especially when washed down with the pink prosecco donated by Momentum Wines of Oswestry. We raised £530 for CRY for Matthew and made lots of new friends who are now more aware of Cardiac Risk in the Young.”

In Memory of

Adam Donnelly

• Sandra Clark sent in a donation of £1,300. • Sian Donnelly, Chanel Dykes and Rosie Jackson raised a total of £7,861 through taking part in the Virgin Money London Marathon 2015.

• Sue Dewhirst sent in £500 awarded to her by the Shropshire Junior Football League at their presentation day.

• Julie Donnelly, Jed Donnelly, Sian Donnelly, Lisa Donnelly, Thomas Cooke, Sue Cooke, Denise Esick, Maureen Mullen, Cheryl Morgan, Rochelle Gibbs, Sean Keaney, Eric Adamson, Angela Adamson, Adam Stuchbery, Rachel Hewitt, Jeff Hewitt, Roy Gigg and Anna Ruth took part in the CRY Heart of London Bridges Walk 2015 and raised £528.

In Memory of

Joanne Dowsett

In Memory of

Junior Dian and Jack Maddams

Charlie Cole at Tonbrige Angels FC sent in £4,000 raised in respect of the Football Fightback initiative.

Margaret Waterer raised a total of £976.20 through taking part in the Brighton Marathon 2015.

In Memory of

Adam Drawbridge

In Memory of

Aaron James Dixon

• Gary Dixon sent in a donation of £276. • John Hassell raised £4,556.95 through taking part in the Virgin Money London Marathon 2015. • Matthew Higgins raised £1,682.95 through taking part

42

Les and Sarah Drawbridge took part in the CRY Heart of London Bridges Walk 2015 and raised £555.

In Memory of

Adam Drawbridge and Jane Cutler

Sarah Drawbridge sent total donations of £565 received in lieu of flowers for her mother, Jane.

Issue 67 | May to August 2015


Our Fundraisers In Memory of

Harry Dubois

• Dr Judith Reece sent in a donation of £1,000. • Sheona Griffiths raised £1,500.26 through taking part in the Virgin Money London Marathon 2015. • Alexandra Lambert raised £353.36 through “Meg and Alex do Bogle 2015”.

In Memory of

Amy Evans

• Jane Ewen sent in £234 raised at a concert by Gutersloh Music Centre, Germany, and from friends. • Jane Ewen raised £6,462.16 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Phillip Evans

In Memory of

Annie Edwards

Eleri Edwards and Cathryn Robinson took part in the CRY Heart of London Bridges Walk 2015 and raised £327.

Robbie Winters sent in a donation of £300.

In Memory of

Clare Everett-Allen

In Memory of

Joe Edwards

Jackie Edwards hosted a “A Night to Remember” to commemorate Joe’s 33rd birthday and raised £900.

Cynthia Everett-Allen sent in £100 received from Peter Hunter.

In Memory of In Memory of

David Elliot

Nicola Slater raised a total of £421 through taking part in the Bupa Great North Run 2014.

In Memory of

Sebastian English

Lisa Whitby held a family party and raised £1,095.50.

In Memory of

Sebastian English and Michael Thompson

Mr B Thompson sent donations of £790 received in lieu of floral tributes for his father, Michael.

www.c-r-y.org.uk

Sean Farrell

Moira Farrell sent in total donations of £2,558: Rose, Ian and Sarah Phillips donated £20; Dave and Viv Young donated £500; and Andrea and Quintin Vince donated £2,038.

In Memory of

Harry Faulkner

• Pupils of Lockers Park School took part in a sponsored walk and raised £3,877.29. • Xena Marshall raised £3,000 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Josh Fell

• Julie Thompson took part in the Big Heart Bike Ride in India 2015 and raised a total of £900.

43


Our Fundraisers • Donna and Rich Fell sent in total donations of £4,220 raised at a charity football match and family fun day.

the week, with anything from retro sweet bags to bake sales, and there was even a chocolate fountain!

• Rich Fell sent in total donations of £825: members of the Yorkshire Ambulance Services raised £300 at Christmas; an ex-Hull City player donated £25; and the Senior Tigers of Hull City raised £500.

“The team did an amazing job promoting the charity throughout the week and we managed to raise a grand total of £1,105.”

• Hull City Official Supporters’ Club sold charity wristbands and raised £1,312.24. • Rich and Donna Fell sent in £200 raised through a sponsored skydive.

In Memory of

Bruno Fernandes

Carlos Fernandes sent in £601.76 raised at the Heathfield Inn through raffles and other events.

In Memory of

Therese Field

Tara Field sent in a donation of £805 raised through a Eurovision show.

In Memory of

In Memory of

Nathan Foley

Students at Great Marlow School took part in the Sixth Form Interact Project and raised £840.11.

In Memory of

Andy Forbes

Steve Smith sent in £535 raised from the Image Plus/ Leamington veterans team football match: “Andy died seven years ago suddenly whilst playing football. He had a successful career with Tesco, whom he joined on their graduate training scheme after leaving Birmingham University in 1995. He was a regular first team player at the university and became the university football team club captain in 1993. He was a big Southampton (Saints) fan and loved life and having fun with his mates. Andy sadly left behind his wife Sophy and their two children, Olivia aged two and Harry who was just a few months old.

Thomas Fleetwood

James Maloney sent in £1,105 raised by the Royal Bank of Scotland staff at the Southend Call Centre: “Four years ago a member of my team, Lynne Fleetwood, sadly lost her son Tom to sudden adult death syndrome (SADS) at the very young age of 28, leaving behind a wife and baby daughter. We dedicated a week to raising funds and awareness and promoting the fantastic work that is done by Cardiac Risk in the Young. “We were extremely lucky to have received some amazing prizes from some very generous companies including Manchester United, who sent us a signed picture of Manchester United and England Captain Wayne Rooney. Other prizes in our raffle included a pamper hamper, restaurant vouchers, paintball tickets, and much more. “We tested the staff’s knowledge with our pub quiz and auctioned a manager to do a day on the phones here in the call centre. There were several tasty treats throughout

44

“I’m third from the left on the front row… next to Neil Shipperley, ex-Chelsea/ Southampton/Leeds/Sheffield Utd/Crystal Palace and England U21”

“For the last six years, a few of his friends have organised a veterans football tournament at Hanwell Town FC (which they allow us to play on free) and we hold a raffle in Andy’s memory. It’s exactly the type of event Andy would have loved, followed by a few drinks with good friends and lots of banter.”

Issue 67 | May to August 2015


Our Fundraisers In Memory of

Joanne Fotheringham

Beverley Gilmour sent in £656.41 raised from the Speyside Way 65-mile walk.

In Memory of

Scott Fowler

Mark Healy organised a family fun day and raised £1,000.

In Memory of

Stewart Gardner

• Karen Gardner raised £3,558 through taking part in the Virgin Money London Marathon 2015. • Mark Jones raised £3,102 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Jaimie Gault

In Memory of

Laura Fox

Katie Milldown took part in the London to Paris Bike Ride and raised £530.

In Memory of

Jay Futter

Alison Futter, Sharon Stimpson, Laura Stimpson, Heidi Bull, Rik Bull, Jan Nelder and Chris Seaman took part in the CRY Heart of London Bridges Walk 2015 and raised £230.

In Memory of

Lauren Gallagher

Blanche Gallagher sent in £150 raised from a collection box in the Centra Store, Ballymagarvey.

Larne League Indoor Bowling Club raised £655.53 from a bowling match and an auction.

In Memory of

Jaimie Gault and John Magowan

Margaret Gault sent in total donations of £660; £100 in lieu of Christmas cards, and £560 raised by Martha Magowan at the Massereene Golf Club through a ladies’ competition.

In Memory of

Rebecca Gapes

Ruth Hobbs-Scott raised £2,601.20 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Andrew Gard

Colchester Institute sent in a donation of £100.32.

www.c-r-y.org.uk

45


Our Fundraisers In Memory of

Salena German

• Jackie German sent in a donation of £133. • Carla Spenner, Angela Spenner and Amy Humphries took part in the CRY Heart of London Bridges Walk 2015 and raised £535.

In Memory of

at his funeral, he wanted the money to be donated to CRY. Fred’s first greatgrandchild, Reece, died a week after his first birthday of cardiomyopathy in October 2006. Fred adored Reece and the whole family has supported CRY ever since. Fred passed away on 6 March 2015 aged 79 and a donation of £1,021 is testament to how much Fred and Reece are loved and missed.”

Alexander Goodman

Rosemary and Peter Goodman celebrated their 50th wedding anniversary and sent in £500 received in lieu of gifts.

In Memory of

Ashley Goodwin

Tony and Diane McMullen sent in £100 in lieu of payment for Geoff Goodwin recovering their leather settee.

In Memory of

Lianne Gould

Lianne Garrett raised £2,040.53 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Reece Goodman

Paul Bloxham raised £1,928 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Andrew Graeme

Paul Graeme sent in £100 in respect of undertaking an audit.

In Memory of

In Memory of

Glyn Edwards sent donations of £1,021.30 received in lieu of floral tributes for Fred Hancock:

• Colette Gascoigne at Cardinal Newman College sent in a donation of £325.

“Fred Hancock requested that instead of floral tributes

• Cadley FC sent in a donation of £301.

Reece Goodman and Fred Hancock

46

Jordan Grant

Issue 67 | May to August 2015


Our Fundraisers • Stuart Hughes at Creative UPVC sent in a donation of £1,000.

In Memory of

• Asbestos Control and Treatment, Preston, sent in a donation of £250.

Fergal Doyle raised £815 through taking part in the Virgin Money London Marathon 2015.

• Bold NU TEC Insulation, Preston, sent in a donation of £200. • Altrad NSG, Preston, sent in a donation of £300. • Steve Daly at Fulwood Leisure Centre sent in a donation of £1,055. • Lisa Grant sent in total donations of £2,700; Paul Garstang, Catenian Association, Preston Circle 14, sent £2,200, and Tim Betts, Apache, Forties Delta Charity Committee, sent £500.

Oliver Griffin

In Memory of

Leanne Haddrell

Cathy Dudfield took part in the Cotswold 113 Half Ironman and raised a total of £769.95.

In Memory of

Matthew Hadfield

In Memory of

Adam Green

Tom and Judy Green sent in total donations of £305: the Bloore Rural District History Society donated £219 raised through a raffle at The Peel Arms, and the sale of Judy’s handmade cards raised £86.

In Memory of

James Green

Jena Ramage sent in a donation of £100.

• Stephen Royle raised a total of £555 through taking part in the Prudential RideLondon-Surrey 100 2014. • Patrick Dean raised a total of £570.28 through taking part in the Prudential RideLondonSurrey 100 2014. • Diana Garretts, Andy Hunt, Oliver Hunt, Robert Arkell, William Arkell, Ben Hough, Haidee McAughtrie, Michael McAughtrie, James Hogan, Amanda Hogan, Darryl Hogan, Sally Hogan, Nick Holman and Dan Watts-Read took part in the CRY Heart of London Bridges Walk 2015 and raised £690.

In Memory of In Memory of

Stephen Gregory, Helena Livesey and James Livesey

• Myra Gregory, Stephen’s mum, sent total donations of £200 received in lieu of floral tributes for her mum, Helena. • Myra Gregory sent donations of £280 received in lieu of floral tributes for her brother, James: “I am part of the Heartfelt Group and hope we can raise more funds for this very worthy cause in saving young people’s lives. It has been sad losing my mother and brother within three months but I know they both supported CRY whenever they could.”

www.c-r-y.org.uk

James Haggerty

Carole Holman sent in £200 in respect of a talk by Russell and Jackie Haggerty.

In Memory of

Shamil Hamid

• Inga Kenny at the British Ladies Society Kuwait sent in a donation of £9,312.72 raised through holding various fundraising activities throughout the year: “Founded in 1993, the British Ladies Society (BLS) is an organisation of volunteers that provides British ladies living in Kuwait with the opportunity to meet one another, form

47


Our Fundraisers lasting friendships and learn more about the culture and customs of Kuwait. The focus of this society is two-fold: to provide a network for social and day-to-day living in Kuwait; and raising funds for charities. Each year the BLS membership nominates and votes to support two charities for the year, one in the UK and one in Kuwait. Funds are raised through all of our activities, membership fees, bazaars, coffee mornings, dinners, events and so on.”

Farrant, David Farrant, Andrew Burtenshaw and Wayne Lawrence took part in the CRY Heart of London Bridges Walk 2015 and raised £256.

In Memory of

Alexander Hampshire

Josef Machacek sent in a donation of £100.

In Memory of

Mark Hancock

• Lara Barber sent in £100 raised by Mark’s friends and fellow riders of the Lyme Racing Club. • Mark’s colleagues at Staffordshire Fire and Rescue Service raised £707.43.

Shamil’s mother, Farah, at the Britain in Kuwait Exhibition 2015

From left to right: Viv Anthony, BLS President; Inga Kenny, BLS Vice President and Society Secretary; and Alexia Lodge, BLS Patron and wife to the British Ambassador to Kuwait

• Farah Hamid, Omer Hamid, Maisa Patel, Zaahid Kewalramani, Jessica Grante, Emmanuel Abebe, Alex Sharpe and Simran Poole took part in the CRY Heart of London Bridges Walk 2015 and raised £210.

In Memory of

David and James Hamilton

Rachel Hamilton, Steven Connolly, Louise Smith, Ash Secret, Lorraine Weight, Carolyn Brandrick, Claire Lawrence, Sean Burtenshaw, Liam Burtenshaw, Susan

48

“A fundraising car wash was held by Mark’s Blue Watch colleagues at Sandyford Community Fire Station, Stokeon-Trent, on June 20. The watch were supported by many off-duty firefighters who went along to help as well. The event was really well supported by friends, family and the local community and in total £707.43 was raised.” Angela Hancock. • Angela Hancock sent in £298 raised through an event with the Staffordshire Fire and Rescue Service. “On Thursday 25 June this year 15 intrepid cyclists set off from Ingleton in memory of their friend and colleague Mark Hancock to complete an 80-mile circular route around the Yorkshire

Issue 67 | May to August 2015


Our Fundraisers three peaks, Pen-yGhent, Whernside and Ingleborough. The unique and demanding environment of the Yorkshire Dales made the challenge all the more difficult, but with superb views, great team spirit and an excellent support team of four volunteers the group tackled the numerous valleys and peaks accomplishing around twelve thousand feet of ascent and descent. A magical day with some great memories and plenty of reminders of our dear friend Mark along the way.”

In Memory of

Thomas Hardman

• The Ethos Team at St Michael’s Church of England Primary School, Bamford, held a bake sale and raised £101.20. • William Purser sent in £8,465 raised through the TH96 Run 2015.

• Link4life sent in £500 raised through the TH96 Run 2015.

In Memory of

Matthew Harris

Carolyn and Stanley Harris sent in £360 raised through taking part in the Kenilworth Half Marathon.

In Memory of

Graham Harrison

• John and Judy Harrison held a race night at their local sports club and took part in the Yorkshire Three Peaks and raised £600.

www.c-r-y.org.uk

49


Our Fundraisers “The money was raised by holding a race night at our local sports club in Driffield where friends and family supported us. The funds were used as sponsorship for myself, Judy Harrison, my husband John Harrison, sister-in-law Christine Iveson and brother-in-law Richard Iveson taking part in the Yorkshire Three Peaks in early May which was completed successfully. This was done in memory of Graham, our son, who died in 2008 due to myocarditis aged only 19 years.” Judy Harrison. • Idris Nasar sent in a donation of £360.

• Cathy and Michael Jaque sent in a donation of £200.

In Memory of

Matthew Hesmondhalgh

• Rebecca Green raised a total of £945 through taking part in the Bupa London 10,000 2015. • James Faulkner raised a total of £945 through taking part in the Bupa London 10,000 2015.

In Memory of

• Paula Hesmondhalgh sent in £3,235.50 raised through her CRY Canal Caper event.

Nikky Hart raised £4,045.20 through taking part in the Virgin Money London Marathon 2015.

“What an amazing day! On April 19, 44 supporters and my canine pal Sid were involved in the CRY Canal Caper, a 19-mile walk in memory of Matthew Hesmondhalgh. The weather was good and we all enjoyed the views. Eight hours later we staggered into the finishing post, ‘Owd Nells, Bilsborrow, for welcome refreshment, 18 people having completed the whole trek. The best part of all – we managed to raise a grand total of £3,351.50 and also raised awareness of YSCD along the way!

Jay Hart

In Memory of

Sarah Hayes

Helen Hayes sent in total donations of £523; Castleton WI raised a total of £488 at their WI centenary day, and Geoff Wilkinson donated a £35 speaker’s fee.

In Memory of

Jon Hayman

Marion Hayman sent in £200 raised through a raffle at the Dukes Inn.

In Memory of

David Hedgecock

Ms J Hopkins sent donations of £113.50 received in lieu of floral tributes for her friend.

In Memory of

Ross Heffler

• Lady Tara Heffler sent donations of £210 received in lieu of floral tributes for her husband. • Christine Southall and Christopher Bradley sent in a donation of £100. • Craig McCauley sent in a donation of £500.

50

“The photo with all the balloons (and painting of barges in the background) was taken at the Waterwitch, Lancaster, at the beginning of the walk and includes all those who completed the whole trek. The photo of the hearts is an example of many that were mysteriously placed along the route to encourage us onward (I suspect Matt’s friends had something to do with that!). The second group photo was taken at ‘Owd Nells, Bilsborrow, at the end of the walk and has just the top of the support boat showing.” Pauline Sanderson.

Issue 67 | May to August 2015


Our Fundraisers In Memory of

Ian Hoggarth

Barbara and Geoff Hoggarth took part in the CRY Heart of London Bridges Walk 2015 and raised £100.

In Memory of

Charlie Holden

• Faye Arnold raised a total of £945 through taking part in the Bupa London 10,000 2015. • Paula Hesmondhalgh sent in total donations of £1,883.61: All Saints Church, Barnacre, raised £117 through their Lent lunches; £25 was donated following a recent screening; a market stall held in Garstang, a milk and honey quiz, sale of coathangers at Myerscough College and sale of magazines at Quilters Quarters raised £349.56; a quiz night at the Roebuck, Bilsborrow, a toy sale at the village hall and a “Feline Friends” quiz raised £354.59; a country coffee morning raised £577.37; and a market stall, plant sales and taking part in recycling schemes raised £460.09.

• Sheila Holden sent in £298 raised through collection boxes. • Claire Crawford took part in the Manchester 10K and raised £754.50. “We were running the race in memory of one of our Year 11 pupils who passed away suddenly in January of this year. The young man was Charlie Holden and his family requested that our fundraising be done in his memory for CRY. It was a very emotional day and we feel for a very worthwhile cause. Seeing all the other runners running in their CRY vests and T-shirts also highlights that there are others who are also experiencing loss as we, a school community, have – and emphasised the importance of the work you do as an organisation.” Helen Farrell.

In Memory of

Richard Hill

Nicola Hill sent in £407.72 raised by her niece Katie, aged 12, and her friend Ellen holding a bake sale.

In Memory of

Laura Hillier

• Tony and Joan Hillier sent in total donations of £1,203 received from their friends and family in lieu of gifts for their 40th wedding anniversary. • Hati Colvin sent in a donation of £290. • Tony and Joan Hillier sent in total donations of £138: Mrs P Hemshall donated £30 and Mrs A Orton donated £20 to commemorate the anniversary of Laura’s death; Mrs Jean Tildesley donated £52; and CRY boxes raised £36. • Hati Colvin raised £2,968.40 through taking part in the Virgin Money London Marathon 2015.

www.c-r-y.org.uk

• Diane Lees took part in a silent auction and raised £695. • Michael Sellars sent in a donation of £315.

In Memory of

Paris Holden

Gemma and Ben Harte raised £4,292 through taking part in the Virgin Money London Marathon 2015.

51


Our Fundraisers In Memory of

Nicholas Holland

Gemma Holland sent in £185 raised by Spinney Motorhomes through the sale of Grace Bears.

• Mick Tuckwood at Rolls-Royce Nuclear Power Branch sent in £500 in support of David Hughes’ charity bike ride from Wembley Stadium to Britannia Stadium. • Leonard Gater sent in £100 from All Sages Cricket and Recreation Ground.

In Memory of

Melodie Holmes

Crystal Dolphin raised £2,998.40 through taking part in the Virgin Money London Marathon 2015.

In Memory of

In Memory of

Emma Hurlbut

Paula Hurlbut and John Kilroe took part in the CRY Heart of London Bridges Walk 2015 and raised £150.

Jonathan Hooper

Peter Hooper, Diane Hooper, Simon Hooper, Stephanie Mayou, Doreen Jolly, David Jolly and Jennifer Anthony took part in the CRY Heart of London Bridges Walk 2015 and raised £420.

In Memory of

Edith Hutchinson

Basil Hutchinson sent donations of £265 received in lieu of floral tributes for his mother.

In Memory of

Stewart Howard

• Jane Howard sent in £1,920 raised at an Easter car boot sale at Tesco. • Jane Howard sent in total donations of £157; Ann and Cheryl raised £107 through a sale, and Hilda Barone raised £50 through the sale of watercolours.

In Memory of

Alex Hubbard

In Memory of

John Ibbotson

Sue Ibbotson sent in £3,000 raised at the annual “Fish and Hits” night.

In Memory of

Charlie Ibrahimi

Cathy Ibrahimi sent in total donations of £220.75.

• Jeff Markham visited Tring School in Hertfordshire and collected £2,000 in respect of a Sixth Form charity week.

In Memory of

• Isabelle Davies at Chesham Prep School sent in £1,388 raised through a sponsored run/ walk.

Kim Airth took part in the Yorkshire Warrior and raised £321.70.

Camilla Irvine

• Dave Lewis sent in £500 raised through taking part in the Grand Union Challenge.

In Memory of

Daniel Hughes

• Roy Tooth sent in £250 raised at a presentation dinner at Potteries and District Sunday League. • Susan Hughes sent in total donations of £371.30.

52

Issue 67 | May to August 2015


Our Fundraisers over the Llanberis pass then topped off by an 11km run up and over the disused slate mine. “We managed to raise £501 for CRY. My brother Denver Jenkins died suddenly from SADS on 27 July 2006. We have been raising monies and awareness for CRY since. We were supported by other members of Lincoln Tri Club, especially Pete Hunt (also pictured). Thank you to all who supported us.” Martyn Jenkins.

In Memory of

Reece Jeffrey

Michael Treharne raised £423 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Lucy Adena Jessop

Tracey Jessop-Thompson, Stephen JessopThompson, Jack Griffiths, Ian Denton, Jane Denton, Alison Jakeman, David Elms, Simon Jakeman, Caroline Ingham and Eileen Macer took part in the CRY Heart of London Bridges Walk 2015 and raised £850.

In Memory of

Denver Jenkins

Martyn and Alison Jenkins took part in the Slateman Triathlon and raised £501.

In Memory of

Stevie Jivani

• Melissa Loan sent in a matched funding donation of £250 from her employer Britvic Soft Drinks in respect of taking part in the Virgin Money London Marathon. • Max Lazarevic sent in a donation of £149.81: “A charity touch rugby tournament took place at Swansea University, with members of various sports clubs both male and female coming together to enjoy a fun evening of rugby and raise both money and awareness of the work CRY does.”

“On May 17 this year, my wife, Alison, and I took part in the Slateman Triathlon. This is an event held in Llanberis, North Wales. It consists of 1km swim, 51km cycle up and

• Prashan Green raised £1,850 through taking part in the Virgin Money London Marathon 2015. • Sarah Henry raised £3,106.20 through taking part in the Virgin Money London Marathon 2015. • Alice Sharp raised £2,531.20 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Caroline Johnstone

Paul Winpear took part in “Paul’s Big Bike Ride” in 2010 and raised £895.

www.c-r-y.org.uk

53


Our Fundraisers In Memory of

Ethan Jones

• Keith Weston sent in total donations of £665 in respect of public speaking engagements, including: £340 from the Probus Club of Purley and the Ashtead Women’s Register; £50 from Mole Valley WI; £50 from Hextable and Swanley Village WI; and £40 from Pinewood Women’s Club. • Rowena Poulter completed the Brooklands Half Marathon and raised £1,250. • Keith Weston sent in total donations of £1,580.50 raised through a sponsored silence. • Philly Campbell raised £2,190 through taking part in the Virgin Money London Marathon 2015.

“Two photos of my granddaughters who helped with the event. We had a very nice day and we will be doing more events in the future.”

In Memory of

Ben Kanfiszer

• Caroline Morris raised a total of £927 through taking part in the Bupa London 10,000 2015. • Tara Shorey raised a total of £927 through taking part in the Bupa London 10,000 2015. • Maggie Dempsey raised a total of £927 through taking part in the Bupa London 10,000 2015. • Kim Patterson raised a total of £927 through taking part in the Bupa London 10,000 2015.

In Memory of

• Eamon Deighan raised £235 through taking part in the Virgin Money London Marathon 2015.

Gina Challen, Ellie Challen, Kessi Challen, Harry Hughes, Jodie Hughes, Harry Jack Hughes, Ben Hughes, Tyron McMaster, Hayley Scarlett, Lisa Weisenberger, Stuart Martin, Kate Addley, David Addley and Charelle Nairne took part in the CRY Heart of London Bridges Walk 2015 and raised £830.

• Demelza Carlin, Sophie Breese, Elaine Carlin, Lyndsay Johnson, Helen Pinches, Tim Pinches, Shelley Thompson, Abi Clifton, Sharon Richards, Natasha Morley, Kellie Clowes, Julian Chadbourne and Kieran Collingwood took part in the CRY Heart of London Bridges Walk 2015 and raised £222.

In Memory of

In Memory of

Dominique Pharoah raised £3,677.31 through taking part in the Virgin Money London Marathon 2015.

Alison Inwood and the Kellogg family held a coffee and cake morning and raised £660.

Ricky “Boo” Jones

Alex Kaiser

Joseph Kellogg

In Memory of

In Memory of

Trina Kamis sent in £150 raised through a tombola and car boot sale:

David Davies raised £5,593.62 through taking part in the Virgin Money London Marathon 2015.

Matthew Kamis

Austin Keohane

In Memory of

Jenny Kerwood

Simon Pettitt took part in the Isle of Wight Challenge and raised £555.

From left to right: Matthew’s nieces Courtney (aged 14) and Ellie (aged 13)

54

Issue 67 | May to August 2015


Our Fundraisers In Memory of

Rishi Kukar

• Parvin and Suman sent in £250 to commemorate what would have been Rishi’s 18th birthday. • Kiran Kukar, Ravinder Randhawa and Nicholas Rice took part in the CRY Heart of London Bridges Walk 2015 and raised £890.

In Memory of

Jannik Lam

• Birte Harlev-Lam and Mun Seng Lam sent donations of £1,809 received in lieu of floral tributes for their son. • Birte Harlev-Lam, Mun Seng Lam, Katie Harvey, Casper Lam, Susan Lam, Joanne Harvey, Mick Harvey, Bethany Harvey, Jude Bayly, Julie Martin, Charlotte Green, Susan Higginbotham, Apollon Leontas, Nora Lucey, Rona McCandlish, Sarah Bearman, Naomi Jackson, Pamela Rourke, Cathy Rogers, Jennifer Woods, Duncan Woods, Linda Kerns, Michelle Kukielka, Richard Kukielka, Lenya Kukielka, James Rukin, Oliver Geen, Sarab Amin, Daniel Harvey, Wee Leng Yan, Alex Davenport, Miranda Round, Joshua Thomas-Devereaux and Megan Buck took part in the CRY Heart of London Bridges Walk 2015 and raised £2,970.

In Memory of

Robert Lancaster

Martin McColl in Brentwood sent in a donation of £114.50.

In Memory of

Andrew Lancastle

• Laura Lancastle sent donations of £1,000 received in lieu of floral tributes for her husband. • Darren Johnston sent in a donation of £100.

In Memory of

Michael Land

• Katherine Leydon Smith at the Leydon Smith School of Dancing put on a live show held at Pontefract Town Hall and raised £700.

In Memory of

Adam and Jenny Lambert

Jane Lambert, Freddie Bagley, Luke Knight, Louise Gear, Martin Gear, Amelia Evangelista, Caroline Bagley, Mark Roberts and Tory Roberts took part in the CRY Heart of London Bridges Walk 2015 and raised £350.

In Memory of

Mark Lambson

Isabelle Lambson raised £316 through her “Booze-Free Month”.

www.c-r-y.org.uk

• Ruth Cain sent in £210 raised through selling refreshments and a crafts sale at a screening day. • Lynn Tomlin at the Coffee Lounge sent in £100 raised through a psychic evening.

55


Our Fundraisers In Memory of

Robert Lavercombe

Paul Winter raised £100 through taking part in the Paris Marathon.

“They all played a terrific game and £1,635 was raised through entry fees, the players ‘paying’ to play and ‘blind cards’. I would like to thank all the lads and all family and friends who made this possible. I would also like to thank Ken and Maralyn Bowen, CRY Representatives, for coming to the match to support us.”

In Memory of

Scott le Breton

Anthony Jones sent in a donation of £150.

In Memory of

Paul Leach

Jan Ross sent in £1,635 raised through a football match: “A special football match was played in memory of Paul Steven Leach as it is nearing 10 years since he died. Two of Paul’s best friends, Dean Talukder and Davie Fagan, organised the match at Middlesbrough’s Riverside Stadium, with friend Paul Crager managing to get the ground and loan of MFC strips free. The two teams, Marton FC and Preston Farm Motors FC, were made up of family and friends including Paul’s brother Chris and nephew Ryan.

In Memory of

Margaret “Peggy” Leith

Mr J Leith sent donations of £458 received in lieu of floral tributes for his wife.

In Memory of

Adam Lewis

Kim and Peter Lewis sent in £250 raised through coffee mornings.

In Memory of

Adam Lewis and Ian Doherty

Peter Carroll took part in a “dads and lads” football tournament and raised £112.50.

In Memory of

John-Paul LipscombStevens

Philip Stevens took part in an Annapurna Base Camp trek and sent in offline donations of £100:

56

Issue 67 | May to August 2015


Our Fundraisers In Memory of

Kevin Lloyd

Ted Lloyd sent in total donations of £200 received in lieu of gifts for his wife Marie’s 70th birthday.

In Memory of

Jamie Loncaster

“Back in March I planned a trekking challenge to Annapurna Base Camp in the Nepal Himalayas with my friend from Darwin, Australia, as a charity challenge in aid of CRY, because we lost our eldest son to ARVC in 2010. Meeting up firstly in Bhaktapur to visit the historic temples and shrines and then on to experience the amazing old Kathmandu city that is now sadly so badly damaged by the earthquake of April 25. The 13-day trek started with the terrifying bus journey from Kathmandu to Pokhara along the winding mountainous road congested with huge lorries, buses, cars and huge numbers of motorcycles. “The trek proper started the day after with an easy day up the valley from Nayapul (1,070m) to Tikhedhunga (1,500m). After a night in a draughty ‘tea house’ and pouring rain there was a huge ascent of 3,000-plus steps climbing up 2,750m into the forests of rhododendron to Ghorepani, the gateway to Poon Hill. Waking at 4:30 am, there was a 1hr climb up to the top of Poon Hill (3,200m) with a great throng of people of all nationalities to see the spectacular sunrise kissing the tops of the snow-clad mountains of the Annapurna range.” The full account of Philip’s trek is available at www.c-r-y. org.uk/annapurna-base-camp-trek-in-memory-of-johnpaul-lipscomb-stevens

• Peter Loncaster sent in a donation of £150. • Susan Loncaster sent in £150 in memory of her grandson with an additional donation of £35 from her cousin, Ena Kay Hawkins, making a total raised of £185. • Graham Loncaster sent donations of £1,226.69 received in lieu of floral tributes for his son. • Lisa Lyne forwarded a donation of £100 raised through a collection from all the staff at Swanland Primary School. • Karen Scott raised £647.40 through taking part in the Virgin Money London Marathon 2015. • Graham and Jenny Loncaster sent in total donations of £1,034.44: the sale of memorial wristbands raised £151.50; former Leapfrog Nursery employees donated £200; the owner of The Millhouse Restaurant, Skidby, donated £365; general donations at Graham’s local Co-op amounted to £29.07; donations at McColl’s amounted to £18.87; the Co-op in North Ferriby raised £120; and Graham, Jenny and Ross donated £150. • Elizabeth Lees sent in a donation of £500. • Cheryl Atkin at Young’s Seafood sent in total donations of £350.

In Memory of

Tom Lovatt

Barclays Bank sent in a matched giving donation of £725.15 in respect of Alyson McCormick’s fundraising.

In Memory of

Edward Lovegrove

CRY volunteer Linda Marsden was presented with a cheque for £363.70 from Mount Stuart Hospital in memory of their former nurse.

www.c-r-y.org.uk

57


Our Fundraisers • Amy Cunningham raised £12,588.40 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Luke Macleod

Kevin Macleod took part in a 175-mile bike ride from Glasgow to Birtley and raised £533.

In Memory of

In Memory of

Stella Lowry

John Lowry sent donations of £250 received in lieu of floral tributes for his mother.

In Memory of

Jack Maddams

• Kerry Drew sent in £300 raised from a Champagne auction. • Lesley Sellens organised cake sales, raffles and a barbecue, supported by family and friends, and raised £750.

Martyn Luckett

Brenda Luckett sent in total donations of £165; a group of retired policemen who stayed at their farm recently donated £120; and £45 was collected from family and friends at Martyn’s 10th anniversary memorial service.

Marie Manhire-Clark

• Andrew Morris sent in £440 raised from playing the “thank you game” at his wedding. • Chris Dale took part in the Isle of Wight Challenge and raised £940.

In Memory of

Martyn Luckett and James Tucker

Chris Simpson raised £1,553.35 through taking part in the Virgin Money London Marathon 2015.

In Memory of

John Luxford

Kevin Luxford raised £3,910.42 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Andrew Macleod

• Sarah Anne Campbell organised her “Night with Spanish and Friends” event held at the Sea Angling Clubhouse in Stornoway and raised £2,817.

58

In Memory of

• James Manhire-Clark, Shirley Kaye, Paul Kaye, Neil Clark, Gavin Clark, Hannah Clark, Fiona Clark, Jack Walker-Nash, Lois Brooks, Garry Slevin, Lesley Slevin, Emily Slevin, Rosie Slevin, Lee Slevin, Angela Manhire, David Manhire, Luke Manhire, Imogen Manhire, Faye Parker, Michelle Chadwick, Becca Clark, Genna Blagg, Pat Bruckland, Pam Palmer, Rebekah Humphris, Mick Jackson, Beth Faherty, John Dellaway, Tony Faherty, Anna Dellaway, Jack Futerill, Jodie Campbell, Mark Gaynor, Ayleshi Fahedaj, Carly Dale, Jenny Higgins, Patrick Jackson, Vanessa Jackson, Jane Young, Kayleigh Reeves, Lorraine Allen, Lesley Botterill, Phil Blagg, Barbara Evans, Sue Loome, Andrew Allen, Adnana Poles, Felicity Gibbs, Julie Little, Shaun Clark, Jim Evans, Anthony Everitt, Melissa Bird, Tracey De-Souza, Mel De’Souza, Jade De’Souza, Emily Everitt, Sefra Crilly, Liz Robins, Karen Davison, Simon Dale, Fiona Rhodes, Vicky Murphy, Tim Leppard, Al Badminton, Julia MacCartney, Mary MacCartney, Keith MacCartney, Lynsey Little, Scott MacCartney, Phil Tyler, Laura King, D Factor, D Factor’s mum, Liam Cousins, Kelli Cousins, Will King, Gemma King, Theresa Little,

Issue 67 | May to August 2015


Our Fundraisers Samantha Burton, Liam Burton, Jim King, Anne King, Richard Clark, Dom Leppard, Joseph Lawson, Leika Bewuell, Gillian Hatherall and Stephen Little took part in the CRY Heart of London Bridges Walk 2015 and raised £2,160.

In Memory of

Balinder Mann

• Tanisha Mann took part in a sponsored silence and raised £1,065.70. • Swakeleys School for Girls held a non-uniform day and raised £494.28. • Jarinder Mann, Narinder Mann, Jaskiern Mann, Mohinder Kaur, Paneil Chutti, Harbinder Mann, Karmjit Mann, Paven Mann, Lavina Mann, Hardeep Chutti, Balbinder Chutti, Dharam Gill, Kilbir Gill, Harvinder Hill, Rutchie Sharma Gill, Parvinder Gill, Prithi Gill, Rav Sighn, Jaskinder Mehat, Gurdidal Lali, Pam Lali, Ruth Thompson, Peter Thompson, Chloe Walker, Rebecca Holderness, Chayanit Phakdipromma, Sukhvinder Johal, Sandip Johal, Shuramya Ananth, Ishpreet, Sundal, Chasney Jones, Amara Malik, Saif Khan, Shabnam Khan and Ajay Sidhu took part in the CRY Heart of London Bridges Walk 2015 and raised £4,240.

In Memory of

Edith Mansell

Brenda Baker and Gill Pepper sent donations of £185 received in lieu of floral tributes for their mum.

In Memory of

Virgin Money London Marathon 2015.

In Memory of

Lewis Marsh

• Basil Body sent in £500 raised from an East Berkshire charity event. • Sarah Bennett took part in the Surrey Half Marathon and raised £916.50.

In Memory of

John Marshall

• Maureen Marshall sent in total donations of £891.09: £300 raised from a screening event; £236.21 from Maricourt School; £104.88 raised at the Coffee Trike at Edge Hill University; and £500 raised from collection boxes at Edge Hill. • Coca-Cola Enterprises, Schweppes Abbey Well, Charity Water Rebate sent in a donation of £1,335.60.

In Memory of

Dean Mason

• Gwenfair Mason sent in £2,505 raised by Celtic Classic Car Rallies: “This money was raised by Celtic Classic Car Rallies who organised a rally of classic cars who travelled to Ireland.” • Gwenfair Mason sent in £400 raised by the Whitland Bowling Club’s team in a dragon boat race.

Ollie Marsden

• Carly Peart took part in the “Carly’s Challenges” event and raised £135. • Keith Marsden sent in £100 raised at 60th birthday celebrations.

In Memory of

Paul Marsden

In Memory of

Dean Mason and Roy Newton

Gwenfair Mason sent in £5,251.62 raised by the family of Roy Newton: “This huge amount was raised in memory of Mr Roy Newton who passed away suddenly. The family raised this money for CRY in his memory and have expressed a wish that it be paid to the Dean Mason account.”

Scott Chenery raised £2,228.14 through taking part in the

www.c-r-y.org.uk

59


Our Fundraisers In Memory of

Daniel Matthews

• Martin Pates took part in the Grand Union Challenge and raised £235: “I started supporting CRY five years ago when a good friend, Daniel Matthews, passed away suddenly. A shock to us all! CRY is a fantastic charity and due to my awareness now I have had myself screened through the work that CRY conduct. In 2010 I wanted to raise awareness and fundraise for CRY, so I ran the Tewkesbury Half Marathon in a time of 2 hours and 2 minutes. My first half marathon and I said never again!

“Fast forward five years and I have now run six half marathons and one trail marathon. I am now hooked on running and wanted a new challenge so in a moment of madness I signed myself up to a 100km (62-mile) run!

• Peter McAvoy sent in donations of £2,800 from Perth Grammar School and £500 from Perth Rotary Club, making a total raised of £3,300. • David McPhee at Housing and Community Care, Perth and Kinross Council, sent in £1,755.10 raised through their charity quiz: “The annual Social Work Quiz was held for the 17th year recently at the Tulloch Institute in Perth with 46 teams taking part on the night from across council services and NHS Tayside, along with some friends and former colleagues. The event was efficiently organised as usual by Quiz Master David McPhee from Housing and Community Care and his glamorous assistants Kevin Heller from Housing and Community Care and Scott Walker from the Chief Executive’s Service, all based in the council, who were ably supported by a team of willing helpers. Since the first quiz took place back in 1999 a total in excess of £17,188 has now been raised for different local charitable causes. This year’s quiz was won by the ‘Sexual Chocolate’ team led by Lorna Hamilton from Education and Children’s Services, as they pipped runners-up from ‘The Firm’ team led by Sarah Rodger from the council’s Legal Services Team. The wooden spoon this year was picked up by ‘The Four Candles’ team led by Alana Taylor from Housing and Community Care.”

“Five years ago I said never again to a half marathon and recently, 12 April 2015, I ran my first road marathon, Worcester, as a warm up to my challenge! I set myself a target of 4 hours and as the finishing line loomed it was a sprint finish to achieve my goal. A time of 3 hours 59 minutes and 23 seconds was clocked. In the Grand Union Challenge I am aiming for a time of 15 hours to complete 100km, this event takes place on June 27 and 28.” • Hartbury football students sent in a donation of £305.48.

In Memory of

Pete McAvoy

• Peter McAvoy sent in total donations of £1,243.45 from the Faculty Student Association of the Kerkimer County Community College.

60

• Peter McAvoy sent in total donations of £1,407: Notley Youth Football Club raised £507; Jeanfield Swifts Girls Football Club raised £50; and St John’s Academy, Perth, raised £850. • Ryan Moon took part in the Spartan South Wales Super UK and raised £340.

Issue 67 | May to August 2015


Our Fundraisers • Richard Wilson raised a total of £2,375 through taking part in the Bupa London 10,000 2015. • Peter McAvoy sent in total donations of £2,700; Sheena Devlin climbed Ben Nevis and colleagues in Perth and Kenross Council held bake days, raising £1,100, and Jamie McRobbie held a race night and participated in the London Marathon, raising £1,600. • Jamie McRobbie raised £3,451 through taking part in the Virgin Money London Marathon 2015.

In Memory of

John McCall

David and Linda Hayes sent in a donation of £100.

In Memory of

Áine McCann

Aoife McCann sent in £3,000 raised through collection boxes at a static bike ride at Asda: “We kicked off the day with our first cyclist at 9am and cycled through until 9pm that night. It was a long day, but once the grand total was counted, we knew it was all worthwhile. Everyone was so cheerful and generous, which may have been a result of Dolly Parton playing in the background! The 12-hour static cycle was a huge success and we raised an extraordinary £3,000. The day would not have been the same without the amazing support from the Asda Enniskillen staff, and the friends and family who volunteered to help out and gather sponsorship. “As you may know, this is my chosen charity for my year as the Fermanagh Rose and I intend to hold plenty more events in aid of CRY, even beyond my time as the

Fermanagh Rose. I picked CRY as my chosen charity as a thank you to my older sister Áine who passed away from an undiagnosed heart condition, called myocarditis, when she was eight, as I strongly believe she has helped myself and my family through so much. I am honoured to be selected as a Representative for CRY and I plan to do the best I can with regards to fundraising and raising awareness. As the youngest ever CRY Representative my aim is to encourage as many people as possible to get checked to prevent future tragedy.”

In Memory of

Charlene McCoy

Cate Doyle at Bunzl Rafferty sent in a further £450 raised by the Honesty Tuck Shoppers in memory of their colleague, making a total raised of £900.

In Memory of

Gareth McGeoghegan

Nina Briggs raised £245 through taking part in the Edinburgh Marathon.

In Memory of

Stephanie McLean

Rachelle Henderson raised £2,043.41 through taking part in the Virgin Money London Marathon 2015.

www.c-r-y.org.uk

61


Our Fundraisers In Memory of

Peter Medcalf

Gavin Neill raised £5,199.20 through taking part in the Virgin Money London Marathon 2015.

“One of our runners, Daniel, not only did he run the 10 miles – he then got on his bike and rode all the way back home to Hemel Hempstead and beat the minibus back – brilliant! We all finished up at our friend Ian’s Brownlow Café for a BBQ which he very kindly had ready for us after our long successful day, we brought our own drinks, cheers! Perfect end to our day.

In Memory of

Josh Merrick

• Eileen Prendergast sent in total donations of £582.49, including £500 in respect of Tony and Mark at Ye Olde Cock Inn, Didsbury, organising a battle of the bands competition. • Miller Newsagents in Didsbury sent in a donation of £143.96. • Caine and Keir Merrick organised a charity football match and raised £331.13. • Mo sent in a donation of £116.19 collected at Urban Grille, Didsbury.

In Memory of

Richard Merriman

“I would never have done this without the love and support from my family, friends and work colleagues, thank you to everyone. With the funds from our cake sale at Easter and other events that very kind friends have done for us we are now able to have our two-day heart screening event and save lives next June at Richard’s previous school, JFK. We did one there last year and were astonished to find out that we had saved two young lives; we are so determined to keep on going with this so our fun-loving son didn’t die in vain.”

• Nicola Merriman sent in £175 raised through a table-top sale. • Nicola Merriman took part in a ridgeway walk and raised £2,390: “Our 10-mile sponsored ridgeway run/walk was a big success on May 16 and we have decided to do it every year for CRY in memory of our son Richard. We had a fantastic day and the weather was very kind to us. I had lots of support from family and friends, especially Nicky Sanders, who went out of her way to make our event a success – she’s wonderful! Also my workplace at Ashridge House let us use their minibus for our event, which took us to Watlington – the start of our run/walk – and we finished at Princes Risborough. The day was breathtaking, such beautiful views!

62

• Nicola Merriman sent in total donations of £920; Ashridge Management College donated £400 raised through their Easter raffle, and an Easter cake sale raised £520:

Issue 67 | May to August 2015


Our Fundraisers In Memory of

Tom Morgan

The Shanly Foundation sent in £500 in respect of Ian Jackson completing the Pennine Way Challenge.

In Memory of

Owen Morris

• Staff and patients of Four Elms Medical Centre, Cardiff, sent in a donation of £287.

“Another great day, my house was open all afternoon for family and friends to buy cakes and gifts.” • Nicola Merriman, Paul Merriman and Sue Mulvey took part in the CRY Heart of London Bridges Walk 2015 and raised £100.

In Memory of

John Millar

Kirsty MacMillan sent in a donation of £115.

2015.

• Damian Pathy raised £890 through taking part in the Virgin Money London Marathon

• Judith Miller sent in total donations of £140. • Gaynor Owen raised £3,004.40 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Luke Morton

In Memory of

Shelly Mills

Oguz Uskuri raised a total of £500 through taking part in the Bupa London 10,000 2015.

In Memory of

Florence Moore

Zoe Hobson took part in the Endurer Dash and raised £125: “Nicki and I had been training for several weeks anticipating that if we could run 8K then we should be fine, after all there were bound to be holdups at obstacles where we could have a breather. Sadly our logic was rather flawed as a good deal of the course involved trudging through mud which was up to our knees! It was incredibly hard going but caused a lot of laughs.

• Alison Moore raised a total of £225 through taking part in the Bupa London 10,000 2015. • Fiona Carr raised £3,277 through taking part in the Virgin Money London Marathon 2015. • Marie Towns raised £3,177 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Jonathan Morgan

Sue Ainsworth sent in £200 from the Freemasons, North York Lodge.

www.c-r-y.org.uk

“We really enjoyed the event and the challenge that it posed. The team spirit was excellent and we would have struggled if it weren’t for other competitors helping out with things like the walls. Our finish time was 2h 23m 32s which we felt was quite respectable, and despite the aches and bruises we are looking forward to doing it again to see if we can improve.”

63


Our Fundraisers In Memory of

awareness about CRY and raise money through donations by selling cakes, samosas and raffle prizes. The day was a huge success with the total amount raised over £1,000. The local community showed their support, with additional support coming from CRY supporters who heard about the event through social media.

David Moss

Liz Heap at Sainsbury’s, Biddulph, sent in £7,350 in respect of various fundraising events including two bag packs, marathon runs on a treadmill and dress-up days.

In Memory of

Paul Mulford

Colin and Sandra Mulford took part in the CRY Heart of London Bridges Walk 2015 and raised £130.

In Memory of

Andrew Murch

Ally Moncrieff at Macnaughtons of Pitlochry sent in £215 raised from collection boxes in his shop.

“A member of the public said, ‘We have not heard about this charity before, but now I know I want to help support you with this cause.’ Our aim is to continue to raise awareness of CRY and show the public why the screening events and the funding is so important.” Kulbir Nagra.

In Memory of

Pardeep Nagra

• Resham Nagra sent in total donations of £2,202.61: Lema donated £400; Zeel Solutions donated £500; Crosby Management Training donated £200; Succeed donated £200; Mr and Mrs Samra donated £460; and Santander donated £442.61. • Barclays Bank sent a match giving donation of £1,000 in respect of Gillian Barratt’s fundraising. • Resham Nagra sent in £5,000 raised by selling cakes and samosas and through a raffle at Barclays Bank and Santander Bank branches. “People say Friday 13 is a day based on bad luck. Well not in Wolverhampton, as the Nagra family took over four Barclays and a Santander to raise

64

• Royal Mail, Charities Trust, sent in £1,265.40 raised through various fundraising events. • Kulbir Nagra sent in a donation of £2,741.

In Memory of

James Nicholas

Kevin and Caitlin Nicholas raised a total of £1,015 through taking part in the Bupa Great North Run 2014.

In Memory of

Richard James Northedge

Pat and Derek Northedge sent in £100 to commemorate what would have been their son Richard’s 40th birthday.

Issue 67 | May to August 2015


Our Fundraisers In Memory of

In Memory of

Dom Bruneau raised £2,866.20 through taking part in the Virgin Money London Marathon 2015.

• St Julie’s Catholic High School girls held a bingo morning and raised £470.

David Nunoo

In Memory of

Thomas Padmore

Paul Padmore, Karen Padmore, Louise Padmore and Oliver Bailey took part in the CRY Heart of London Bridges Walk 2015 and raised £250.

In Memory of

Martin Palmer

Ian and Karen Palmer took part in the CRY Heart of London Bridges Walk 2015 and raised £190.

In Memory of

Shaun Palmer

Joe Parkinson

“On Friday 13 February 2015 a group of young ladies from St Julie’s Catholic High School came together to do a morning of bingo, raffles and a tuck shop. The people that took part in the event were St Julie’s Year 7 and 8 pupils who really enjoyed the morning. The girls put great effort and hard work into this event, before and during the event – they even did mini-events, e.g. a cake sale, to better their main event. The girls did a brilliant job raising money for CRY in memory of a special young man called Joe Parkinson.” Holly Parkinson.

Mandy Palmer along with family and friends took part in a go-kart event to commemorate what would have been Shaun’s 30th birthday.

In Memory of

Ceri Palmer-Howells

• Alison Howells sent in £200 raised in lieu of Christmas gifts and £2,183 raised through “The Grand Day Out”, making a total raised of £2,383. • Alison Howells, Robert Howells, Joel Howells, Virginia Fletcher, Emily Miles and Emma Purce took part in the CRY Heart of London Bridges Walk 2015 and raised £1,028.

• Holly Parkinson sent in total donations of £249; Mossley Hill Ladies v Harry’s All Stars charity football game raised £224, and Marie Griffiths donated £25. • Holly Parkinson sent in £925 raised through friends and family climbing Mount Snowdon.

In Memory of In Memory of

Simon Pangborn

George Pangborn raised £2,310 through taking part in the Virgin Money London Marathon 2015.

www.c-r-y.org.uk

Andrew Parr

• Ruth Lowe sent in £466 donated at the CRY screening held at Longridge High School. • Mark Farnworth sent in £562.90 raised from a collection at Preston North End FC.

65


Our Fundraisers • Ruth Lowe sent in £267.32 collected at Asda Fulwood. • Julie Smith organised a curry night held at The Shampan in Penwortham and a name-the-teddy raffle and raised £800. • Mike Elliott at the Rotary Club of Preston South sent in £250 in respect of a talk given by Ruth Lowe and Christine Abram. • Ruth Lowe sent in £235.50 in respect of a charity afternoon tea: “The first photo is of the Mayor of Garstang and the Mayor of Preston. The second photo is of Andrew, the young man who did the plant demonstrations.”

“Christine, Dot and myself with Cyrille Regis”

“Accepting cheque from Peter Mason (Chair of the Sir Tom Finney Soccer Centre) and BMW”

• Ruth Lowe sent in £2,672 raised through the second Sir Tom Finney tribute dinner at Preston North End: “Earlier this year the Sir Tom Finney Soccer Centre hosted the second Sir Tom Finney tribute dinner at Preston North End. We were delighted when the soccer centre and the Finney family chose to donate to CRY this year. The donation will help fund a CRY screening for the members of the soccer centre in July 2016. The guest speaker was Cyrille Regis and the evening was well attended. Many local businesses supported the evening and it was a great opportunity to raise awareness of the work of CRY, particularly the screening. We are also appreciative of the support from the Bowkers BMW who sponsored the event.”

In Memory of

Christopher Parr

Richard Gill took part in the Big Heart Bike Ride in India and raised £1,821.01.

In Memory of

James Paterson

• Norman and Joan Lyle donated £100 in lieu of a wedding gift for Amanda and Jay. • Chris Spedding sent in a donation of £100.

In Memory of

Kevin Paterson

• Patricia Toft sent in a donation of £130 from Barclays Bank.

“Christine Abram, Dot Quinney and myself with the Finney family (Barbara and Brian, Sir Tom’s daughter and son)”

66

• Sean Power raised £3,078.39 through taking part in the Virgin Money London Marathon 2015.

Issue 67 | May to August 2015


Our Fundraisers In Memory of

James Patrick Patterson

Peter Patterson sent in £2,313, raised through a charity dinner and dance held at the Campion School in Hornchurch on 21 March 2015. The other two charities who benefitted were the Teenager Cancer Trust in memory of former pupil Jack Chester and the Motor Neurone Association. by a sceptical family about a third of the way while they prepared for a pub lunch by the canal.”

In Memory of

Matthew Pearson

George Williamson sent in a donation of £200.

In Memory of

Jenni and David Paul

• Gordon Paul sent in £354 raised through the Buckstone youth dance.

In Memory of

Emma Peek

Marion Peek sent in £100 in respect of the CRY Heart of London Bridges Walk 2015.

• Isabel Marriage raised £4,244.59 through taking part in the Virgin Money London Marathon 2015.

In Memory of

In Memory of

• Dr David Jollie took part in the Osterley Park 10K and raised £407.91.

• Charles Pearmine sent in a donation of £275.40.

• Georgia Betts and Steven Gaffin took part in the CRY Heart of London Bridges Walk 2015 and raised £1,132.

Adam Pearmine

• Tony Butcher took part in the Grand Union Challenge and raised £1,420: “I met someone running the 100K for CRY at the start of the event. Although I know Action Challenge is a commercial company I thought it was very well run. I am just sorry that my style is to keep going rather than enjoy their facilities and food (yes, I did drink water). I finished in 11 hours and 9 minutes – had I participated in the Zumba warm up I may not have even made it to the canal. “I came 119th out of 168 but as that included 50K runners I think I was around the halfway point of the 50K walkers and for my personal aims that is fine for me. Had there been a weighing machine at the finish I might just have dipped near target! I attach a photo taken

www.c-r-y.org.uk

James Pettifer

In Memory of

Christopher and Steven Phillips

Chrissie Tonks and Lauren Beckley took part in the Stafford Half Marathon and raised £1,158.47. “We finished in a time of under 1 hour 58 minutes so very pleased. We also managed to collect £1,158.47 in donations so well above our target. Thank you for our vests they were

67


Our Fundraisers In Memory of

James Phillips

• Fiona Barnes raised £5,592.73 through taking part in the Virgin Money London Marathon 2015. • Suzy Kerton raised £5,574.73 through taking part in the Virgin Money London Marathon 2015. proudly worn on the day and we hope we have helped your very worthy cause.” Chrissie.

In Memory of

Duncan Phillips

• Jeremy Jackson sent in £135.20 raised at the second annual Duncan Phillips Memorial Football Match. • Heather Phillips, Nick Baldwin, Peter Hallisor, Matt Hewetson, Sarah Wainwright and Laoidhe Eve took part in the CRY Heart of London Bridges Walk 2015 and raised £455.

In Memory of

Jack Phillips

Ellie McCabe at Royal Wootton Bassett Academy sent in £200 raised through various fundraising ventures throughout the year.

• Jane Keat held a cake sale and raised £115: “In the week beginning 2 March 2015 I did a colossal amount of baking... including chocolate biscuit cake, carrot cake muffins, raspberry muffins, dairy-free banana fruit loaf, and gluten-free choc chip cookies, and on Thursday 5 March I took some of these cakes to an art class that my mother goes to in Dawlish Warren together with a picture of James and a piece of writing about him. I also put out leaflets about CRY and the work they do. “I asked for a minimum donation of 50p per item... I was amazed to collect over £45! The cakes disappeared in less than 20 minutes! £45 in 20 minutes! Amazing! The next day I did the same again – I took the remaining cakes into Exeter College (Humanities Department – where I used to work) and put them out and got another £45! My husband also took some cakes into his place of work as well (Network Rail/Amey offices in Exeter)... (not so many as we had nearly run out by now!) and got more than £20! Thanks to many people’s generosity the total came to nearly £115 so I rounded the figure up. So, so pleased that I did this and helped raise some money for this great charity.” • Fiona Barnes, Jane Keat, Nick Keat, Sam Keat, Kate Edmond, Sophie Murray and Matthew Murray took part in the CRY Heart of London Bridges Walk 2015 and raised £480.

In Memory of

Rebecca Phillips

Julie Phillips, Peter Phillips, Natasha Phillips, Lee Phillips, Kate Phillips, Nick Phillips, Tracy Newton, Antony Hayward, Katie Baalham, Matt Baalham, Sharon Bate, Tracey Farthing, Ashleigh Farthing, Benn

68

Issue 67 | May to August 2015


Our Fundraisers Warren, Kayleigh Warren, Treesa Carter, Ali Carter, Holly Warren, Jody Warren, Marie Hawes, Hayley Zara Clements, Keiren Smith, tori Mason, Carol Abbott, Vicky Mann and Clare Parkins took part in the CRY Heart of London Bridges Walk 2015 and raised £247.

members and staff have raised a fantastic £900. Mr Mark Powell, Craig’s father, attended Crosskeys Youth centre to receive the donation and acknowledged the fantastic fundraising that the members and staff achieved over the past year. We at Crosskeys sincerely hope the donation will raise awareness of young sudden cardiac death, support those affected, and support CRY’s screening programme.”

In Memory of

Jonathan Picker

Dave Chilton raised £2,206.50 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Hannah Pickering and Caroline Johnstone

Ryan Lanham raised £1,956.01 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Sara Pilkington

• Ann Tunwell sent in £100 raised in respect of the Perch Challenge. • Penny Bell sent in £200 in respect of the Perch Fund. • Joe Elliott sent in £3,240 raised through the students at Collingwood College holding a fashion show.

In Memory of

Michael Pope

John Cooper took part in a skydive and raised £240.45.

In Memory of

Craig Daniel Powell

• Steve Dimmick, Senior Youth and Community Worker at Crosskeys Youth Centre, sent in £900: “Over the past year Crosskeys Youth Centre

www.c-r-y.org.uk

• Helen Fleming, Mark Powell, Luke Powell, Anne Rowe, James Rowe, Rod Upham, Marlene Upham, Lynda Evans, Karen Fleming and Michelle Sexton took part in the CRY Heart of London Bridges Walk 2015 and raised £728.

In Memory of

Shannon Powell

Christina Weeks sent in £834.98 raised through a series of charity events at Northwood College for Girls.

In Memory of

James Poynton

Andrew Kayley sent in donations of £300 collected from the audience and a prize draw for the Birkenhead District Gang Show in memory of their former cast member.

69


Our Fundraisers In Memory of

Robert Poysor

Diane Tolley held two car boot sales and raised £200.

In Memory of

Nick Preston

Kevin Jarvis at Broadhempston United FC sent in £738.08 raised in memory of their former player.

In Memory of

Edwin Mark Price

Pauline Cotton sent donations of £136.56 received in lieu of floral tributes for her brother.

put aside the sights we were witnessing – ‘It’ll be fun… honest…!’ “12 noon start, a group warm up with our fellow competitors (and a semi-naked guy), there were several chants of ‘WE LOVE MUD’ enthusiastically, and we ran across the start line… straight into a muddy, cold water ditch. It was fair to say, we no longer loved mud. We pushed each other over walls, we pulled each other out of ditches and on occasion, we deliberately attempted to trip each other up into the mud some more. There was one moment, before we had to crawl through a cargo net through knee-deep mud, where we all looked at each other and noted that Roger was likely to be sat on his cloud, laughing his bottom off at us right now. I hope he was.

In Memory of

Mark Richard Price

• Michael Thomas raised £1,852.79 through taking part in the Virgin Money London Marathon 2015. • Suzanne Thomas raised £1,881 through taking part in the Virgin Money London Marathon 2015.

In Memory of

“We are truly humbled by the support we have received. Val, Trish, Rose and I have a few bruises and sore muscles, but we did it. And we did it in memory of Roger.”

Roger Pyatt

Sarah O’Connor at Clarksons sent in a donation of £200: “They say that a woman is not only able to withstand a high pain threshold, but also forget about said pain quite shortly after the experience… upon completion of the 2014 Nuclear Rush mud race, I promptly forgot all the pain I had endured, and quite disgracefully described to my unsuspecting colleagues ‘a gentle run in the bluebellcovered Essex woods, with the odd splash of mud lightly touching my cheeks along the way.’ ‘Oh that sounds fun!’ exclaimed Trish. ‘Yes, sign me up!’ gushed Val. I am so very sorry for my lapse of memory, ladies. Saturday 16 May saw – what can only be described as – carnage. Ever seen one of those apocalypse movies? Where the walking dead with torn clothing and dirt-streaked faces aimlessly limp around? I gulped, and had a flashback of the MUD… No going back now, and I jovially attempted to

70

In Memory of

Gemma Quew

• Ian Stephens at Ryde Town Council sent in £100 from his ward allocation. • Andrew Quew raised £2,116 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Claire Reed

• Mike McKay sent in a donation of £100.

Issue 67 | May to August 2015


Our Fundraisers • Graham Hunter sent in £250 donated from the Hedge End Rotary Breakfast Club. • Donald Clark and John Farrell took part in the Three Peaks Charity Week and raised £100.

In Memory of

Scott Rennie, Aunty Edna and Uncle Jimmy

The Rennie family sent a donation of £100 in memory of Scott’s aunt and uncle.

In Memory of

Alex Reid

Lisa James at the University of Nottingham sent in £100 raised in respect of physiotherapy and sports massage.

In Memory of

Miles Reid

• Annie Bettison sent in £100 from Miles’ girlfriend Molly and her friends. • Kevin Devine sent in a donation of £105.

In Memory of

Tom Reid

• Valerie Bugg at West Yorkshire Police sent in £150 raised from the charity tuck shop. • Justine Phillips sent in £243.85 raised through the Garforth Academy.

In Memory of

Debbie Rendle

Sylvia Pezzack sent in total donations of £453; screening days in May raised £308, and Newlyn Trinity Ladies Network meetings raised £145.

In Memory of

Scott Rennie

The King’s School, Worcester, raised £1,891.10 through a 24hour ergothon.

www.c-r-y.org.uk

In Memory of

Jonathan Richman

Sarah Corbett took part in an Easter 10K and raised £345.

In Memory of

Sian Roger

Keir Roger, Kathy Griffin, John Braine, Jean Wyatt, Jo Roger, Brian Roger, Linda Kaley, Joan Braine, Martin Roger, Monika Schiffer, Emma Stanley, Robert Manners, Marie Browne, Thomas Browne, Helen Harris, Martin Harris, Dean Griffin, Emma Griffin, Dan Harrington, Rose Harrington, Pearce Harrington, Katie Browne, James Collins, Laura, McDonald, Stuart McDonald, Matthew Couldridge, Niall Clinton, Colin Wordsworth, Andrew Kirby, Maria Kirby, Phil Eckardt, Lizzie Eckardt, Edel O’Shea, Robert Manners, Charlotte Ellison, Claire Wright, Hannah Pettit, Kim Watson, Matthew Roberts, Dave Cooper, Helen Harper, Anna Harper, Marisse Smaill, Maggie O’Sullivan, Brenda Hayes, Shanthi de Costa, Chris Currie, John Herlihy, Jane Philpott, Richard Boynton, Emily Boynton, Thomas Roger, Alexandra Argunova, Amanda Poole, Daniel Gibbs, Antony Jones, Richard Roy, Peter Kenny, Elena Kenny, Robert Anders, Lara Anders, Kate Kelly, Tom Kelly, Katherine Campion, Richard Campion, Sarah Jeffery, Matthew Vas, Martin Rees, Ay Lin Kho, David Rees, Helen Taylor, James Taylor, Bharath Rao, Isabel Reyes, Shaun Robinson, Karyn Robinson, Sameer Patel, Lucy Topley, Daniel Topley, Nicola Evans, Amit Sharma, Emily Hillman, Austen Eadie-Friedmann, Helen Baus, Stefan Rivera, Nick Moonfield, Melissa Clinton, Jacqueline Persechino, Gemma Fraser, Kelly Phillips, Ashley Roberts, Clare Vas, Antony Jeffery, Lisa Jeffery, Michelle Gibbs, Chris Cooper and Patricia McCunney took part in the CRY Heart of London Bridges Walk 2015 and raised £9,467.

In Memory of

Stuart Ross

• David and Janet Ross sent in £500 raised by Arlene Paisley and members of the Magheramorne Sequence Dance Club.

71


Our Fundraisers • Louise McAleer at Progressive Building Society, Belfast, sent in a donation of £5,000 in respect of the Paws in the Park event: “The sun shone at Paws in the Park, which raised muchneeded funds for the charity which promotes and develops heart screening programmes and supports young people diagnosed with potentially life threatening cardiac conditions.

dog show and all in all it made for a fantastic day which was great fun and everyone really got into the spirit of the event. All the dogs were very well behaved and the only barks were of excitement at meeting other friendly dogs!”

In Memory of

Stephen Rowan

Jennifer Mackay took part in the Edinburgh Marathon and raised £146.

In Memory of

Graham Royle

Emma Sinclair raised £1,940 through taking part in the Virgin Money London Marathon 2015.

“Commenting on the event, Manager of Progressive Newtownards Lyn Crawford said: ‘We can’t begin to thank all the people that were so kind giving up their time and money to ensure that the day went so well. Personally I would like to thank Pauline Simpson, Julie Daurge of the Great Dane Club, Primacy Meats, Billy McClements, Buster the Dog and all the staff of our Newtownards Branch and their partners and family who without their support the event wouldn’t have been as successful as it was. Progressive would also like to thank Doggie Day Care, David Clulow, Savages Dog Biscuits, Nicky Naturalraw Feeding, Bangor Supplies and Daz Brown Dog Photography. “Following the walk we had a BBQ and

72

In Memory of

Veronica Russell

Stephen Russell sent donations of £120 received in lieu of floral tributes for his wife.

In Memory of

Russell Salter

• Lynn Robinson at Booker sent in £21,009.95 raised through various fundraising events and initiatives throughout the year. • Natasha Mills took part in the CRY Heart of London Bridges Walk 2015 and raised £248.

In Memory of

Chloe Sary-Bool

Annabel Bool took part in a bridge event and raised £140.

In Memory of

Max Schiller

• Suzanne Brennan sent in a donation of £100 from ADR Holdings. • David Schiller, Shira Schiller, Molly Schiller, Helen

Issue 67 | May to August 2015


Our Fundraisers Burdett, Debbie Ram, Amanda Leighton, Douglas Whitewright, Anne Whitewright, Marcela Vondrackova, Steve Goldstein, Lisa Goldstein, Suzanne Brennan, Ciaran Brennan, Mark Lee, Mark Lynch, Sarah McClaren, Ian McClaren, Patty Brown, Richie Brown, Rosamund Liebefkind, Zoe Rose Davies, Lou Sharman, Oliver Cowie, Maria Farrell, Alex Farrell, Simon Nimmo, Jon Chadwick, Bob Roboatham, Lisa Roboatham, Robert Robertson, Scott Levy, Sarah Levy, Lee Sullivan, Dawn Sullivan, Gary Stanton, Chris Scott, Sandra Scott, Pat Sullivan, Tatyana Pyle, Keith Pyle, Ian Burrell, Jessica Berry, Mina Khatri, Sonail Khatri, Louise Robey, Susan Robertson, Lesley MacKinnon, Sarah Boyle, John Boyle, Paul Lawrence, Stacey Lawrence, Harry MacKinnon, Cara MacKinnon, Philip Maurice, Ann Maurice, Julie Cook, Samantha Gray, William Gray, Phillipa Bean, Sam Stiller, Jodie Rich, Ben Chadwick and Tom Chadwick took part in the CRY Heart of London Bridges Walk 2015 and raised £12,322.

In Memory of

Neil “Kymatik” Schuyleman

thought impossible just weeks before. All the while I had the determination to stick at it as I knew that it was for the best of causes. The day of the marathon arrived with a huge amount of excitement and fear. Having had an injury the month before that had limited my training I knew I had to just go out there and give it my all. “And what a fantastic experience it was! The support from the crowds was amazing and Copenhagen was a beautiful city to run around. The first half of the race flew by with a smile on my face, as it got tougher all I had to do was dig deep and remember why I was there and all the fantastic support I had from family, friends, Bishopton Rugby and of course CRY. Looking back I can’t help but be proud that I managed not only to complete the marathon but more importantly that I raised money and awareness for this fantastic charity.”

Helen Davies, Peter Davies, Anna Georgakakos, Minas Georgakakos and Ann Edwards took part in the CRY Heart of London Bridges Walk 2015 and raised £1,663.

In Memory of

Garreth Scott

Mark Murphy raised £1,951.51 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Matthew Seymour

• Hannah Davies took part in the Copenhagen Marathon and raised £180:

• Struan Dickie sent in £2,570.45 raised through a charity rugby match. “To everyone involved in making Matthew’s charity day such a wonderful occasion – thank you. We would also like to thank Liz, Robyn, Brooke and Ruiaridh Sutherland for sharing the day with us and celebrating Ivel. To everyone at Bishopton Rugby Club and St Columba’s School, including staff, pupils, family and the pipe band, we thank you all.

“Having decided to run the Copenhagen Marathon I wanted to make the most of the opportunity and raise money for CRY in memory of Matthew Seymour who died suddenly last year. Matthew played alongside my brother and boyfriend for Bishopton Rugby Club and his death was difficult for all at the club. “Training for the marathon itself was challenging although enjoyable. It pushed me to run distances I would have

www.c-r-y.org.uk

73


Our Fundraisers “In April 2014 my brother Paul Sheridan tragically died cycling home from work from a cardiomyopathy called AVRC. He was an amazing and very proud brother, son, husband, father and friend who is truly missed by everyone who knew him. Paul was the fittest person I knew, running or cycling pretty much every day. He ran seven marathons in his short lifetime, all in very impressive times. I ran my first marathon three days before Paul died last year.

“Special thanks go to Struan Dickie, Matthew’s former school friend, who came up with the idea of a charity game between St Columba’s School FP’s and Bishopton Rugby Club to raise money for CRY. As a family, we have been overwhelmed by the love and support we have received since we lost our lovely son Matthew.” Kenny, Doreen and Harry.

• Kenny Seymour sent in a donation of £283 from St Columba’s School. • Adam Quail took part in a Tough Mudder challenge and raised £1,847.50.

“Almost one year on, on Sunday 22 March 2015, I ran the Reading Half Marathon to raise as much money and awareness as possible for CRY. Training gave me time alone to run and think of memories of Paul. Doing something I knew Paul also loved was a bit like therapy for me. Raising money felt like I was doing something to help. I did a bake sale at work and took in leaflets to encourage colleagues to share information about CRY and screening days. “The run itself was emotional. I ran wearing a CRY top and had pictures of Paul on my back. It was amazing to have so many people there to support me; three sisters, my husband, mum, dad, step-mum, niece, nephew and brother-in-law. Their banners and cheers really helped me to keep going, especially around mile 10/11 when it was really starting to hurt! Running into the stadium was overwhelming. I cried crossing the finish line as it reminded me why I was running but also because I know Paul would have been proud of me. It felt like a great achievement. I’m sure there will be many more events I do in the future to raise more money in Paul’s name.”

In Memory of

Stanley Wilfred Shears

Roma Brian sent donations of £107.30 received in lieu of floral tributes for her brother.

In Memory of

Paul Sheridan

• Emma Dallimore took part in the Reading Half Marathon and raised £620:

74

• Linda Dearnley raised £1,050.42 through taking part in the Virgin Money London Marathon 2015. • Sara Sheridan raised a total of £1,883.18 through

Issue 67 | May to August 2015


Our Fundraisers taking part in the Brighton Marathon. • Kate Fender took part in the CRY Heart of London Bridges Walk 2015 and raised £585. • Adam Fraser raised £1,922.25 through taking part in the Virgin Money London Marathon 2015. • Nick Beale raised £205 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Jack Sheriff

Liz Sheriff, Marilyn Henry, Matilda Henry, Liberty Henry, Maggie Ward, Yvonne Faux, Vicky Wilson, Rebecca Freir, Paul Hughes, Fran Gridley, Dave Gridley and Liz Snowden took part in the CRY Heart of London Bridges Walk 2015 and raised £2,304.56.

In Memory of

Gregg Shoults

• Tara Phee sent in a donation of £205. • Fiona Shoults sent in total donations of £1,500; CSIS donated £1,000, and the WH and A Hawkins Charitable Trust donated £500.

In Memory of

Ben Simpson

Rob Simpson raised £400 through a golf tournament: “Ben’s family and many friends got together again to hold a golf tournament at Iford in his memory and to support CRY. We raised £400 and although the golf was ‘patchy’ we all had a good time at what was Ben’s spiritual golfing home in Bournemouth.”

In Memory of

Aashi Sinha

• The pupils at Forest School in London raised £2,590 through their annual Fusion show, a celebration of diverse cultures featuring music, dance and drama. • Ajay and Suman Sinha sent in total donations of £2,970 raised through a cake sale at the Church Hall in Gidea Park, with thanks to Sainbury’s, Hornchurch, Westcliff-On-Sea and Southend; Greggs, Romford; Waitrose, Upminster; Cakes Fiesta; Lilly London Cupcakes; Tracey’s T Cakes; Christ Eternal High Priest Church, Romford; Boutique Cakes; and Will Gardiner. • Suman Sinha, Ajay Sinha, Bal Sharma, Sanjula Sharma, Ben Spiers, Rebecca Newell, David O’Leary, Charles McGilloway, Isha Kulkarni, Andrea Athangelou, Maria Balabanis, Chantal Robinson Bailey, Anthony Graff, Sarah Helen, Rose Newell, Tannavi Sharma, Zoscha Partos, Michelle Partos, Charles Partos, Katya Partos, Ravina Bhanot, Anna Feldman, Ross Ritchie, Catherine Wise, Darius Greenidge, Katy Sheridan, Cassie Panteli, Stephanie Yip, Rebecca Kay, Alexa Kerr-Dineen, Nitharshi Nagarajah, Michael Seal, Megan Holder, Francesca Henry, Rachel Babarinde, Rashi Mane, Chloe Hern, Jesse Obiri-Yeboah, Charlotte Kelner, Carolyn Heath, Alice Dainton, Wendy Bishop, Anurag Sharma, Emily Atalar, Isabelle Bishop, Kate Batson, Mina Coombe, Andrew Coombe, Eleanor Ward, Kim Wolstenholme, Roshni Morzana, Frederica Wakeel, Tamara Ibrahim, Miriam Babarinde, Peter Baker, Maria Ron Balseca, Villeac Whelan, Harry Hughes, Anna Graham, Harry Welchman and Donna Graham took part in the CRY Heart of London Bridges Walk 2015 and raised £1,013.50.

In Memory of

David Smiley

• Tom Freeman raised £1,090 through taking part in the Virgin Money London Marathon 2015. • Peter Hopkisson raised £2,868 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Sarah Simpson

Hilary Simpson, Linda Atkins and Julian Atkins took part in the CRY Heart of London Bridges Walk 2015 and raised £275.

www.c-r-y.org.uk

In Memory of

Sue Smit

Mary Wilkes sent in a donation of £175.

75


Our Fundraisers In Memory of

In Memory of

• Gary Smith sent donations of £452 received in lieu of floral tributes for his son.

Julia Smith and Susan Camp took part in the CRY Heart of London Bridges Walk 2015 and raised £250.

Ben Smith

Robert Smith

• Martin Potts took part in a 500-mile challenge and raised £206.25: “I set myself a challenge of 500 miles’ walking in 10 weeks, walking locally but finishing in John O’Groats as it’s 500 miles from Congleton. I chose CRY as a good friend of mine died age 27 doing a half marathon.”

In Memory of

Robert Daniel Smith

• Linda Smith sent in total donations of £505: a Langley Park Co-op collection pot raised £55; a University Hospital North Durham collection pot raised £75.70; and a coffee morning raised £374.30: “On Saturday 21 March we held a coffee morning for CRY in memory of Robert Daniel Smith in our local church hall. We were overwhelmed by the people of the village who attended and supported us.” Linda Smith.

In Memory of

Darren Smith

Ann Fisher sent in £1,600 raised through the Lennoxtown Co-operative taking part in a sponsored walk of the West Highland Way and in-store collection boxes.

In Memory of

• Lloyds Bank, Sacriston, held an Easter tombola and book sale and raised £205.

Cain Green raised £1,337.70 through taking part in the Virgin Money London Marathon 2015.

• Linda Smith sent in total donations of £1,576.35: a Langley Park Co-op raffle raised £125; a Langley Park Co-op pot raised £40.60; and a charity night held by Linda and her family raised £1,410.75:

Lee Smith

In Memory of

Lee Smith and Andrew Baker

Laura Cooper raised £263.50 through her 30 for 30 campaign.

76

“On Friday 8 May we held a charity night in memory of Robert Daniel Smith at

Issue 67 | May to August 2015


Our Fundraisers our local WMC in Langley Park. We had a group called Triple Vision, a game of bingo and also a drinks raffle, all proceeds donated to CRY.”

of delicious cakes. During the afternoon, lots of friends and family popped in to buy them and have a cup of tea, with some even coming back twice. After a long but very happy day, we raised a stunning amount – £533.60 – plus online donations of £310 from those who couldn’t make it to the sale. A fantastic amount raised for a fantastic charity.”

In Memory of

Lee Stables

Sharen Stables sent in total donations of £608: Ulverston Rotary Club donated £150; Bruce and family in Australia sent £20; a donation box raised £68; Mr J sent £330; and Mr J Junior sent £40.

• Linda Smith sent in total donations of £404.84: a collection pot at Canterbury Road Co-op raised £58.39; Langley Park WMC donated £100; and a New College cake sale, organised by Linda, raised £246.45.

In Memory of

Phil Standing

• Linda Smith sent in total donations of £400: Steelers Football Club donated £200; Canterbury Road Co-op donated £45.61; Langley Park Co-op donated £23.79; a cake sale raised £60.60; and other donations amounted to £70.

In Memory of

Nigel Spender

Pam Spender sent in £100 on behalf of the Inner Wheel Club of Port Talbot.

In Memory of

Rupert Spurling

Sue Spurling sent in £843.60 raised through a cake sale: “Thankfully the sun was shining for Cameron and Freya’s fourth tea party and cake sale in memory of their dad. After days of baking and icing – and a bit of tasting – we had a table full of all kinds

www.c-r-y.org.uk

• Sue Fisher sent in £112.50 raised at a screening held at Mountbatten School.

match:

• Daniel Keating sent in £1,060 raised through the UWMFC Old Boys 2015 football

“Former players of Warwick University Men’s Football Club organised a memorial football match on May 30 in remembrance of Phil Standing. The occasion brought together several generations of the university’s teams, with all participants having either played alongside Phil or knowing of him through the club’s social network. The match was played in a great spirit with both sides doing their best to show that the aging process hasn’t yet got the better of them! “Fittingly the contest ended in a 4-4 draw, providing plenty of entertainment for those watching from the touchline, including Phil’s wife Kate and twin sons Oliver and Ben (although several of the players’ children were in attendance and cheering on the players, Oliver and Ben decided to have their own game on an adjacent pitch!).

77


Our Fundraisers In Memory of

Ben Steele

Lady FOHF took part in a Twitter prediction competition and raised £281.56.

In Memory of

Andrew Stevens

Gill Kennerley sent in total donations of £1,794.62 raised through a garden party. “These lads all knew of or played with Phil at Warwick University. The match was held to celebrate his memory and share the laughter and good times. This whole day was a great success and raised over £1,300 for CRY to use towards future heart screening events. After the match the players retired to the clubhouse to reflect on an enjoyable afternoon and share memories of happy times as part of the various teams in which they played alongside Phil. Particular thanks must go to the King’s House School, Richmond, who generously provided the facilities for the occasion, meaning that every penny raised could go to CRY.” “It is events like this that not only raise awareness of Cardiac Risk in the Young but also help the family to continue to cherish and celebrate Phil’s life. Thank you to all involved.” Sue Fisher.

In Memory of

Shane Stanley

• Aaron Stone sent in £278.35 raised through the Shane Stanley bike ride. • David Leabourne raised a total of £559.52 through taking part in the Brighton Marathon. • Barclays Bank sent in a matched giving donation of £279.76 in respect of David Leabourne taking part in the Brighton Marathon.

In Memory of

Leo Stevens

Maxine Stevens raised £277 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Gary Stewart

• Malcolm Scott completed a skydive and raised a total of £1,010. • Gary’s cousin Michael and friend Scott took part in a 1,300-mile cycle challenge and raised £560. • Michael Rae sent in a donation of £150.

In Memory of

Natalie Stewart

Cliff Stewart, Gwen Stewart, Chloe Stewart and Helen Woods took part in the CRY Heart of London Bridges Walk 2015 and raised £250.

In Memory of In Memory of

Harry Starrett

Pamela Towers sent in total donations of £573.22; £120 was donated in lieu of wedding favours, and a street collection and charity event held by Armagh City Ladies Football Team raised £453.22.

78

David Stiller

Mary Stiller, Linda Stiller, Bryan Stiller, Martin Stiller, Chris Carter, Karen Sheppard, Kester Westcott and Emily Westcott took part in the CRY Heart of London Bridges Walk 2015 and raised £926.

Issue 67 | May to August 2015


Our Fundraisers In Memory of

Ian Strange

• Patricia Strange sent in £100 to commemorate Ian’s birthday. • Patricia Strange, Gill Mather and Sandra Thomas took part in the CRY Heart of London Bridges Walk 2015 and raised £100.

• Carly Sykes-Blowers, Patricia Berry, Peter Sykes, Clare Sykes, Anna Dillon Patel and Deborah Hyder took part in the CRY Heart of London Bridges Walk 2015 and raised £305.

In Memory of

Hannah Taylor

Charles Bull sent in £110.16 raised from a charity box at a Homecraft DIY shop.

In Memory of

Frances Stringer

Mr J Stringer sent donations of £152.32 received in lieu of floral tributes for his father.

In Memory of

Patrick Swinson

Gillian, Robert and Julia Swinson sent in total donations of £330; the congregation at Patrick’s great grandmother’s funeral donated £230, and the round the island yacht race raised £100.

In Memory of

Paul Sykes

• Rob Hazell took part in the London to Brighton cycle and raised £100. • Carly Sykes-Blowers sent in £6,288.58 raised at the “Celebrating Sykesy” golf day held in memory of her husband:

“It was a fantastic day and a great celebration of Paul’s life and was so well supported that I was quite overwhelmed. We had 112 golfers, many spectators and supporters and a good time was had by all. It was extremely touching that Thomas [Paul’s son] took the first tee shot of the day and I think he found it extremely emotional but good fun too.”

www.c-r-y.org.uk

In Memory of

Dale Tennent-Butler

• Angela Tennent-Butler sent total donations of £2,200: a golf day at Shendish Golf Club raised £1,200; a quiz night at Kings Langley Cricket Club raised £500; and LTI Applied Systems Technology donated £500. • Mark Brazier raised £1,900 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Gareth Llywelyn Thomas

Anne Thomas and Trefor Thomas took part in the CRY Heart of London Bridges Walk 2015 and raised £165.

In Memory of

Jack Thomas

• June Thomas sent in total donations of £2,338.08: Blackwood RFC held memorial games and raised £630; The Cedar Tree, Caerphilly, collected £63.36; David Phillips donated £150 in respect of a bid placed for a signed Welsh rugby shirt; Jack’s aunt, Jill Childs, donated £20; Joy Greenaway raised £62.82 by dressing up as a Welsh lady and collected in Blackwood High Street; £148.56 was collected at Markham One Stop Shop; £273 was donated at a screening event in Jack’s memory; Foundation Business Entry Level 2 students at Crosskeys College collected £130; customers at Blackwood Asda raised £710.34 by placing money in collection buckets at the checkouts; students at Crosskeys College raised a further £100; and Mr Smith

79


Our Fundraisers made a £50 screening donation. • Kenneth Roberts took part in Born 2 Run Ultra and raised £366: “The whole field should be proud of their fantastic efforts on a deceivingly demanding route, in torrential rain and gale-force winds, that started from Bynea Cycle Club and went along the coastal path to Burry Port Industrial Estate before turning back and through Sandy Water Park to join the Mynydd Mawr route heading inland up past Pontyberem to Tumble before returning to the cycle club.” “I managed to complete 40 miles in 6 hours 45 minutes and finished in 21st position out of 41 finishers. The last four miles seemed to take forever, but I believe the feeling of accomplishment far outweighs the pain during the race. After all it was for a fantastic cause.” • Ken Roberts raised £298.65 in respect of the Born to Run and Run Crawl Walk events.

In Memory of

Nicholas Thomas

• Laura Prodrick at Babyballet Gravesend and Meopham raised £145 from the raffle of a personalised Babyballet jumper. • Lynsey Ritchie took part in the Paddock Wood Half Marathon and raised £595. • Patrick McKenna sent in a total of £500: £125 on behalf of the Royal Mail, Eltham Delivery Office; Julia Harrison donated £125; and Mr and Mrs Morse donated £250. • Patrick McKenna sent in £550 raised through staff members taking part in the Royal Mail Eltham 10K Run. • Kerry Martin sent in a Barclays Bank matched giving donation of £1,050. • Lisa Ellis took part in a 50-mile sponsored walk and raised £905. • Llara Thompson, Geoff Bartrum, Carol Cameron, Lesley Carley, Paul Carley, Elizabeth O’Beirne, Amanda Hemmings, Mandy Sheaf, Louise Morrison, Clare Rogers, Sharon Allsop-Kenney, Ellie Rogers, Jay Delamere, Lucinda Williams, Grace Harriman Read, Phil Browning, Louise Mole, Darren Durnin, Vanessa Strauss and Gary Valler took part in the CRY Heart of London Bridges Walk 2015 and raised £936.

In Memory of

Oliver Thompson

• Jane Troth at Cliftonville Primary School sent in a donation of £252.25. • Cheryle and Graham Thompson sent in a donation of £100.

In Memory of

• Cheryle Thompson, Graham Thompson, Alexander Thompson, Neil Davidson, Barry Mason, Janet Mason, Tina Arnold, Genever Setterfield, Michael Setterfield, Laura Kemp, Alison Kemp, Nicola Benton, David Wilde, Irene Taylor, Laura Powell, Caline Brockman, Beth Johnson, Jayne Lawrence, Dale Hedges, Laura Palmer and Rachel Hedges took part in the CRY Heart of London Bridges Walk 2015 and raised £1,841.87.

• Wilmington Grammar Boys School sent in a donation of £716.77.

In Memory of

• Gareth Jackson raised £1,193.40 through taking part in the Virgin Money London Marathon 2015.

Chris Thurlow, Wendy Thurlow, Cathryn Simpson, Nicholas Simpson, Marcelle Thurlow, Marc Thurlow and Venessa

Leanne Hooper raised £2,160 through taking part in the Virgin Money London Marathon 2015.

Jack Thompson

80

Scott and Michael Thurlow

Issue 67 | May to August 2015


Our Fundraisers Thurlow took part in the CRY Heart of London Bridges Walk 2015 and raised £1,120.

In Memory of

Joe Tiplady

• Anthony Parsons sent in a donation of £100.

process but I was pleased to complete my first marathon in just under four hours! Here is photographic evidence of the hardship both during and at the end of the race. It was all well worth it though as I’ve been overwhelmed with sponsors and have surpassed the £200 target!”

• Melanie Stokes and family sent in a donation of £100. • Tony Stewart sent in £100 raised from all the players at Furzedown OFAFC.

In Memory of

Timothy Traylor

• Derek and Pamela Traylor sent donations of £484.38 received in lieu of floral tributes for their son. • Kat Henley sent in a donation of £250.

In Memory of

Hannah Turberville

Katy Turberville sent in £500 from JMS Plant Hire, on behalf of their client, Lakehouse Contracts.

In Memory of

James Usher

Jane Usher, Jeanette Zaman-Browne, Helen Florence, Sheila Day and Fred Day took part in the CRY Heart of London Bridges Walk 2015 and raised £501.

In Memory of

Chloe Waddell

Christopher Tait took part in the Greater Manchester Marathon and raised £235.70: “I’m still in the recovery

www.c-r-y.org.uk

In Memory of

Neil Walden

Peter Walden, Zoe Walden, Anna Jackson, James Jackson, Pam Pentney, Andrea Chappell, Tony King, Bazen Inquai, Dorothy Burrows, Amanda Stephens, Chris Stephens, Julian Arriens, Louise Spencer, Danny Spencer and Eve Dustin took part in the CRY Heart of London Bridges Walk 2015 and raised £1,138.43.

In Memory of

Chris Walker

Cat Walker took part in Just Walk and raised £305.

In Memory of

Tom Wall

Michael Hirst sent in £100 in support of Derek Gammage’s participation in the “Tom’s Trooper Lyon–Nice 2015 Cycle Spectacular” event.

In Memory of

Matthew Wallbank

Michael Sharp raised £2,354.06 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Neil Ward

• The Jubilate Singers sang in Dronfield Church on the Wednesday of Holy Week and raised £205.08.

81


Our Fundraisers • Elaine Ward sent in total donations of £1,876.12: Slimmers’ World donated £50; a collection outside Sainsbury’s raised £320; Cestrefeld Lodge Benevolent Fund donated £350; the Provincial Grand Charity of Derbyshire donated £350; and donations at screenings in Chesterfield amounted to £806.12.

In Memory of

George Watson

Allison Richards sent in £815 raised at a Royal Cabaret variety performance:

In Memory of

Melissa Watts

• Clare Watts raised £5,058.80 through taking part in the Virgin Money London Marathon 2015. • Madeleine Pollard completed the Vitality Bath Half Marathon and raised £433.10.

In Memory of

Lily Webster

Rod and Pam Lucas sent in a donation of £100.

In Memory of

Gavin Peter Weller

Donna Ewels raised a total of £1,415 through taking part in the Bupa London 10,000 2015. “We had a great night with Blondie, Freddie Mercury and Elvis! I am still totting up the totals to get the final amounts which we are dividing between three charities this time: CRY, Motor Neurone Disease and the Nightingale Macmillan Unit, Derby Hospital.

In Memory of

Aimee Wellock and Mr Wellock

Patricia Wellock sent donations of £317.25 received in lieu of floral tributes for her husband.

In Memory of

Sally Wells

“We raised a lot of money from three auction items and then we did a raffle as well. We put out collection tins on the bar for people’s spare change and also on the tables we displayed leaflets and info.”

Simon Wells, Margaret Wells, Karen Cockerill, Francesca Clements, Mo Norris, Chris Norris, Sarah Humphries, Marilyn Humphries, Helen Andrew-Steer, Ian Childs, Emma Woodford and Julie Robinson took part in the CRY Heart of London Bridges Walk 2015 and raised £483.

In Memory of

Shaun Whitfield

Kelvin Hebburn raised £5,229.40 through taking part in the Virgin Money London Marathon 2015.

82

Issue 67 | May to August 2015


Our Fundraisers In Memory of

Emlyn Wibberley

Mark, Megan and Alice Wibberley raised a total of £5,355.26 through various fundraising activities.

In Memory of

Neil Wickers

• Chris and Mandy Davies sent in £100 donated in lieu of an antique valuation. • Sandra and Alan Hall sent in £200 in lieu of gifts to celebrate Alan’s 70th birthday.

In Memory of

Amy Williams

Liz Williams took part in the Greater Manchester 10K and raised £220.

In Memory of

Joe Williams

The Nationwide Building Society in Swindon sent in a matched giving donation of £600.

In Memory of

Joe and David Williams

Joe Gym completed the Adidas Silverstone Half Marathon and raised £265.

In Memory of

Sarah Williams

Kevin and Tricia Williams sent in a donation of £250 from the London Freight Club.

In Memory of

Kay Wilson

Anna Dennis took part in a skydive and raised £125.

In Memory of

James Winchester

Kelley Webber took part in the Winchester Challenge and raised £1,202.50.

In Memory of

Jake Wood

• Jason Mitchell raised a total of £516.20 through taking part in the Brighton Marathon. • Christine Fairweather raised a total of £667 through taking part in the Brighton Marathon. • The Year 6s at St Mary’s Prittlewell Primary School, Southend-on-Sea, raised £176.15 through various charity sales: “All of Year 6 made and sold seaside-themed products to the school, including drinks, cakes, flapjacks, sweets and ice-creams. After we sold our products the money that was left over was to be donated to a charity. There were many suggestions; I represented you and you won the vote. “To me personally this was very pleasing as my cousin Jake died at the age of twelve of a heart disease. My father has also donated to you as he ran the Brighton Marathon for you twice and is going to next year as well. “As CRY is a relatively small charity I thought that this money would be received gratefully. I would like to imagine that this money could help someone just like Jake to live for longer and that he would be proud of what we did.” Iris Mitchell and the Year 6s of St Mary’s.

In Memory of In Memory of

Craig Wilson

Tony Wheatman raised £2,418.70 through taking part in the Virgin Money London Marathon 2015.

www.c-r-y.org.uk

Joan Wood

Sharon Sheader sent donations of £121.50 received in lieu of floral tributes for her mother.

83


Our Fundraisers In Memory of

General Fundraising

Laura McMahon raised £2,488.90 through taking part in the Virgin Money London Marathon 2015.

• Richard Abraham raised £1,929.20 through taking part in the Virgin Money London Marathon 2015.

Liam Wood

• Joanna Adamson raised £2,511.60 through taking part in the Virgin Money London Marathon 2015.

In Memory of

Liam Wood and Nathan Butler

• Angela Butler sent in £475 donated by AFC Saints Football Club in memory of Liam for the Nathan Butler Memorial Fund: “The football team hold a memorial match every year in memory of Liam and all of his teammates and their families participate in the match which is enjoyed by all who attend, but obviously tinged with a lot of sadness.” • Adam Lawton raised £1,984 through taking part in the Virgin Money London Marathon 2015.

• Nathanael Ahearn raised £502.50 through taking part in the Virgin Money London Marathon 2015. • CRY Representative Ruth Lowe was presented with a cheque for nearly £100 in respect of St Aidan’s Primary School pupils’ fundraising: “I went to collect the cheque from St Aidan’s Church of England Primary School, Bamber Bridge, Preston on Friday 20 March. They arranged all kinds of activities – book sales, cake sales, a colouring competition, making words from Cardiac Risk in the Young and a collection at their Christmas play.”

In Memory of

Louise Worth

Morag Jarvis sent in £175 received in lieu of gifts to mark her retirement.

In Memory of

James Worthington

Vanessa Worthington and Rachel Kloosterboer took part in the CRY Heart of London Bridges Walk 2015 and raised £405.

• Mrs E Allbutt sent in £105.70 raised through fundraising at All Saints’ First School in Leek. • Safder Amin sent in a donation of £100. • Elaine Armstrong sent in £250 on behalf of her family.

In Memory of

Sam Wright

• Charles Stewart took part in the Lincoln 10K and raised £400. • Mark Shaw sent in £500 in respect of his sister, Emma, going a year without alcohol. • Members of Derby Rugby Club sent in a donation of £215. • Dani West sent in £227.53 raised during a Derby screening event.

84

• CRY Representative Jenny Smiley attended the Ashford Flower Club monthly meeting and collected a donation of £400. • Gary Miles at AXA Insurance sent in £3,360.59 raised through various fundraising: “At AXA Lytham all employees have an opportunity each calendar year to submit a charity of their choice for the site to support. A great many local and national charities are submitted and over the years we are proud of the generosity in both the time staff put in to each charity and the amount of money generated. In December 2013, Cardiac Risk in the Young was put forward and voted as

Issue 67 | May to August 2015


General Fundraising

“Vickie Taylor was not only our walking heart, but also sat with three 9-year-old girls for two hours making loom bands, a challenge indeed.”

the charity to support from 1 July 2014 until 31 December 2014. There are several families within the workplace and local area that have been impacted by the sudden death of younger family members and friends. “The first decision made by the charity team was to deliver a CRY kick-off walk through the building. This constituted: one staff member dressed in the CRY heart costume; charity committee members distributing chocolate heart sweets (kindly donated by AXA); distributing leaflets about the purpose of CRY; and selling the memorabilia CRY had sent. The kick-off was a huge success and for colleagues who had not heard of CRY before, there was no doubt about what CRY stood for following the kick-off. “The events that followed the kick-off were all as equally successful and consisted of the following moneyraising ventures for CRY: on every Friday at the Lytham site, employees are allowed to dress down; on every Wednesday, volunteers bring a variety of breakfast snacks in to the cafeteria for sale to colleagues and visitors; Paige Miles, Olivia Miles and Erin Waters came into the office and sold loom bands; a number of tuck-shops selling chocolate bars and sweets; an ice bucket challenge; a key-in-the-box activity; a ‘wear red for CRY’ and Halloween bake-off day; a wear your Christmas jumper day, Christmas fair, tombola/raffle and IT Christmas message board (this was an alternative to Christmas cards, where colleagues wrote their Christmas message onto a white board and made a donation); employees brought into the office books they have read and these can be taken by colleagues following a donation; collection pots throughout the building and within the reception; and the site Christmas party.”

www.c-r-y.org.uk

• Russell Baker sent in a donation of £100. • Barclays Bank sent in total matched giving donations of £1,202.56. • Beth Barron raised £2,290.40 through taking part in the Virgin Money London Marathon 2015. • Simon Barton sent in £100 raised from a weekly work lottery. • Martina Beames took part in the Greater Manchester Marathon and raised £311: “I had a great time in Manchester doing the marathon. Right from the start everyone was friendly and cheering everyone else on. The warm up with some former Gladiators really helped get the muscles ready for the distance that we were planning. I was aiming to complete the course in five and a half hours. I managed to keep ahead of the five hour pacer up until mile 11 which meant I was well on course to complete in under my target. I also did my best ever half marathon which I am very proud of.

“Having the crowds constantly cheering you on really helps and it’s great fun running past the crowds whilst small children hold out their hands to you waiting for a high five. I managed to keep going at my run/walk schedule till around mile 23. At no point did I ever feel that I ‘hit the wall’, instead I felt that I could easily keep going. However, my right ankle had other ideas and started to feel really tight and painful to run on. I managed to power walk

85


General Fundraising the remaining three miles and completed the marathon in 5 hours and 38 minutes which I was really happy with, despite the pain from my ankle. Shortly after crossing the finishing line I hobbled into the first aid tent where a doctor told me I had inflamed the tendons in my ankle so it would be painful to do anything on it for a while. “Even nearly a month on I am still feeling pain occasionally but am trying to keep going with my new gym routine. Having done this I feel a lot fitter, and when I went for my regular pacemaker check up the cardiologist noticed that I had better results than last year (thanks to my new level of fitness) although my battery is slowly running out now. I really enjoyed this challenge and as soon as my ankle is back to normal I will be starting on another one, I just need to find one first!”

• Leigh Bowdler, Emma Seymour and Rebecca Withers completed the Major Series 10K and raised £377. “We decided to participate in the major series for different reasons; some saw it as a challenge and others as a bit of fun (crazy, I know). When it came to deciding whether to fundraise or not the choice was easy… we are three nurses that work on an acute cardiology ward and we see people of all ages come through our doors and are surprised by how young some of them are. We picked CRY as a charity to fundraise for as it’s nice to know that there is more support out there for them, so we wanted to help raise money so that it continues. Weston Hospicecare was picked as our second charity as one of our team members has experienced first-hand their amazing work.

• Suzanne Bellew raised £185 through taking part in the Virgin Money London Marathon 2015. • Helen-Claire Burt at Berkhampsted School sent in £359.55 raised at the King’s School Sports Dinner Award event in March. • Beths Grammar School in Bexley, Kent, held various events during Comic Relief Week in March and raised £632.42 • CRY Representative Sue Dewhurst attended the Biddulph Rotary Club and collected a donation of £500.

• Dr Daniel Bishop held a raffle at his 40th birthday party and raised £217.50. • Sarah Bittorf sent in a donation of £100. • Josh Bone took part in the “11 Men and a Lot of Miles” challenge and raised £1,375.67. • The Bournemouth Chapter Rose Croix Masonic Group sent in a donation of £150.

86

“We put in a lot of training between the three of us leading up to the race but in some ways we weren’t sure how to prepare. When race day arrived we didn’t know what to expect, but were ready for anything! If we were asked to use three words to describe the race it would be wet, sticky and muddy! It was definitely a mud-filled army assault course!

“We all got round in one piece (just about), had a lot of fun but battled a few injuries and got very cold on the way. If asked whether or not we would do it again I think two out of the three of us would give it another go. We are so proud to have raised over £700 to be split between our two charities!” • Zoe Kollov at Boxgrove Primary School sent in £390 raised through a summer fair. • Lynn Brannan raised £201.47 from her bag pack. • Adrian Buckland sent in £705.80 in respect of the CRY Heart of London Bridges Walk 2015.

Issue 67 | May to August 2015


General Fundraising • Hayley Burns raised £930.60 through taking part in the Virgin Money London Marathon 2015 in memory of her dad.

• Sarah Doidge sent in a donation of £105.

• Nichola Burns raised £2,332.04 through taking part in the Virgin Money London Marathon 2015.

• James Donolon raised £811.78 through taking part in the Virgin Money London Marathon 2015.

• Gemma Hudson sent in £102.06 raised through a dress down day at Cardinal Maritime Group.

• Sue Dorrell organised a jumble sale with help from Avryl, Freda and Sue and raised £1,003.

• Breige Morgan sent in £300 raised through the Carrick and District Indoor Bowling League’s charity cup competitions following a nomination by Wilson Weir.

• Hilda Duff sent in £570 raised through a charity lunch at Neston Cricket Club.

• Paula Chattington sent in £100 in gratitude for her son’s screening. • Jenny Whitaker sent in £400 collected by members of the Coffee Set in Ashford. • The College of West Anglia sent in a donation of £382.19. “Ten of my students of the Uniformed and Public Services course from the College of West Anglia held a fundraising day including a continuous static bike ride and cake stall. My fiancée Julie lost her brother, Darren, at a young age to this whilst studying at Manchester University, so this is quite a poignant link in many ways to both of us.” Neil Reader, Uniformed and Public Services.

part in the Virgin Money London Marathon 2015.

• CRY Representative Shelagh Green accepted a cheque for £150 raised at the Edinburgh University Hare and Hounds 5-mile race. “In March, Edinburgh University Hare and Hounds (EUH&H) hosted our annual 5-mile road-race, with a third of profits going to charity – which we had decided should, as last year, be your charity, given your fantastic record and cause to which athletes can definitely relate.” Huw VaughanJackson, EUH&H Treasurer 2013-15.

• Richard Cox and his team took part in Effective Energy’s 2014 fundraising and raised £922.34. • Elizabeth Armstrong, Principal at Collegiate Grammar School, sent in £253.50 raised through a school council charity event.

• Global’s Make Some Noise sent in a total of £4,503; £3,487 was donated for a screening day at St George’s Hospital, and £1,016 was donated for a myheart meeting.

• Alexandra Cook raised a total of £180 through taking part in the Bupa London 10,000 2015.

• Karen Selby at Essex Junior Squash sent in £205 raised at a squash tournament.

• Nicholas Cooper sent in a donation of £150.

• Paul Flax sent in a donation of £200.

• Peter Sattaur sent in £173 raised at the Cuddington Casuals CC “Club Day” – a seven-a-side tournament.

• The Forest School in Wokingham held a cake sale and raised £135.07.

• The Deanes School, Thundersley, held a nonuniform day and raised £100.70.

• Abigail Frost sent in £353 raised through climbing the O2.

• David Dixon raised £3,287.20 through taking

“The Highways and Bridges BD team went sky high,

www.c-r-y.org.uk

87


General Fundraising climbing the roof of the iconic O2 for Cardiac Risk in the Young. Claire Wisbey, Louise Jeffers, Angela Khudonazarova, Jack Wells, Phil Rivet and Nicky Gale were raising money for CRY as they support young people diagnosed with potentially life-threatening cardiac conditions. Long QT syndrome is one of these, which has been identified in Nicky’s family through genetic testing.

“This was a challenge for everyone, having to overcome issues from a fear of heights to vertigo. Luckily we had a clear day for the climb which is 52m high and involves an ascent and descent of up to 30 degrees. We strapped ourselves to the safety lines and began our climb. Steeper than expected it was quite hard work to get to the top – lots of encouragement and nervous laughter helped us to get there. Feet on solid-ish ground we were allowed a while to take in the scenery and have photos… it was then time for the descent. This was probably the bittersweet moment for everyone, having to walk forwards down the steep descent but able to see the end in sight! A truly once in a lifetime experience – thank you to everyone who supported us!” The Highways and Bridges BD Team.

Challenge and came second. He is 14 years old and was competing against all ages. He chose CRY as his charity as he has recently had a free heart screen test from yourselves and decided he would give something back! His uncle, Stephen Whitehead, also took part in the race and raised money for CRY… This race was also part of Tom’s Duke of Edinburgh Award and so far he has loved every minute.” Sarah Grundy (proud mum). • Students at The Grange School held an assembly and sent in £352.55. • Students of Guildford High School’s class 8HR held a cake sale and raised £176.44. • Alexander Halliday sent in a donation of £500. • Arbuthnot Latham & Co made a donation of £250 in lieu of CRY Patron Simon Halliday’s fee in respect of a book judging award. • Cheryl and Steve Haynes took part in the CRY Heart of London Bridges Walk 2015 and raised £110. • Philippa Hennessy raised £600 through taking part in the Virgin Money London Marathon 2015.

• Caroline Gel took part in the Vitality Reading Half Marathon and raised £130. • Brad Goldsmith took part in the Wolf Run and raised £421. • Tom Grundy took part in the Edgworth 5K Reservoir Challenge and raised £370. “Tom Grundy ran the annual Edgworth 5K Reservoir

88

• Mrs K Hindmoor sent in total donations of £506.80 raised by the pupils and parents at Harris Primary School in Preston through various fundraising activities throughout the year. • Reverend Beardsley, Church of England Chaplain at HMS Raleigh, sent in donations given by the trainees and others from the Church of England Sunday service. • Roslyn Holmes raised £785.99 through taking part in the Virgin Money London Marathon 2015.

Issue 67 | May to August 2015


General Fundraising • Hornsea School and Language College sent in £118.83 raised at a Year 7 enterprise day. • The Howard of Effingham Sixth Form students raised £457 through a Rag Week.

“Every year the Senior Prefect team plan and organise the Rag Week for the Sixth Form; the week is always a main highlight of the Sixth Form calendar and this year’s appeal was no exception. After much deliberation over the different themes for each day, Sixth Form students voted for their three charities and CRY was voted as the main charity for the week. “The week kicked off to a chilled start for ‘It’s Monday’ where pyjamas and sleeping bags filled the Sixth Form Centre with hot chocolate sales and sleeping bag races throughout the day. Tuesday saw students’ creativity pushed with ‘Ninjas, Pirates and Princesses’ and events included a photo treasure hunt and blind date! Students embraced their childhood ambitions for ‘When I Grow Up’ with costumes ranging from doctors to surfers to the Pope! Thursday saw a divide as we all picked a side in ‘Geeks vs Gangsters’ but we all united to throw sponges at Biology Department’s Mr Harvey. To conclude an amazing week, we jet-setted for a cultural celebration ‘Around the World’ and all came together for the Howard Olympics, before being rudely interrupted by the fire alarm halting our games. Despite this, we didn’t let it ruin our games and came back in to finish our week with a Year 12 vs Year 13 tug-of-war. “After all the money had been counted, we were lucky enough to arrange a cheque presentation with Dr Steven Cox, CRY Deputy Chief Executive and Director of Screening. It was great for our hard work to be acknowledged by a

www.c-r-y.org.uk

representative from the charity itself and to hear the amazing work that is done by CRY and the difference it makes was truly inspiring. We would like to thank everyone from the Sixth Form for all your support. Big thanks also to CRY for the fundraising support before, during and after our appeal.” Sam Batchelor, Deputy Head Boy. • Florence Howatson took part in the CRY Heart of London Bridges Walk 2015 and raised £358. • Lauren-Emily Hughes, Clare Pepper, Ellie Boyle, Josh Van Cuylenburg and Adam Hughes took part in the CRY Heart of London Bridges Walk 2015 and raised £310. • Simon Ingram sent in £111 representing royalties from his book Living By My Rules: “My second book about my life before, during and after being diagnosed with Parkinson’s disease is a very upbeat assessment on how my life has changed in the years since the early signs of the disease presented themselves. I am well aware that Parkinson’s is a life-changing not a lifeending condition, sadly that is not the case when tragically young people are lost to an undiagnosed heart condition. “When I heard how a friend of the family living in London had lost her son to this silent killer, I felt compelled to include a short piece about CRY in my latest book, highlighting the excellent work you do and at the same time pledging 50% of the profits made to the charity (the other 50% will be going to Parkinson’s UK). Sadly, the amount donated from the sale of the 100 copies I’ve had printed won’t be a huge amount of money, although people have proved to be extremely generous. I’m just as hopeful that my book will help promote the superb work that CRY does and if I had one overriding desire, it would be that in some way my writing will help prevent the needless death of a loved one.”

89


General Fundraising • Frances Wallace sent in £200 raised by the various clubs in District 1 and the Inner Wheel Club of Aberfeldy and District. • Rebecca Johnson sent in £100 on behalf of the Interact Group at the Deepings School Sixth Form in Lincolnshire. • Pat Jackson held a garden party and cream tea and raised £280. • Jason Jarrett sent in £680 raised through the Waendel Walk. • Éireann Kerr raised £2,522 through taking part in the Virgin Money London Marathon 2015. • Eloise Littlejohns sent in a donation of £100 from KPMG. • The Lady Hind Trust sent in a donation of £1,000. • Julie Lambert sent in a donation of £225. • Students at Lancing College chose CRY as their charity of the year and raised £127.29. • Phil Lang raised £2,087.50 through taking part in the Virgin Money London Marathon 2015 in memory of his girlfriend’s dad and brother.

• Jessica Maranzano took part in the CRY Heart of London Bridges Walk 2015 and raised £380. • Aimee Bott at Marks and Spencer, West Bromwich, sent in £133.53. • Ailsa Marsh raised £1,176 through taking part in a London to Paris bike ride. • Kelly Marston organised an Easter egg raffle and raised £186. • Susie Martinez and team members Chrissie, Sue, Sarah and Alison took part in Just Walk Across the Divide and raised a total of £8,590: “Last October we were saddened to hear the story about a seemingly fit and healthy 21-year-old local boy, who had died suddenly from a heart attack. He was keen sportsman and had in fact been playing rugby just the day before he died. It is difficult to imagine how devastating this was and still is for his family. We were so moved we felt we needed to do something. “When we read his story on the CRY (Cardiac Risk in the Young) website, we were shocked to learn about the statistics associated with sudden death in the young and were keen to make people aware – especially as we are all mothers of very sporty boys.

• Lansdowne Partners sent in a donation of £5,000. • Graham Smith at Leeds University Union sent in a donation of £1,650. • Mark Lennox raised £2,556 through taking part in the Virgin Money London Marathon 2015. • Kerry Lewis raised £1,885 through taking part in the Virgin Money London Marathon 2015. • David Lock sent in total donations of £1,168.68 in respect of the New York Marathon, including a matched giving donation from Deutsche Bank of £668.68. • Dr David Lowe sent in £333.32 in respect of his book royalty payments. • Ben Mace took part in the Madrid Marathon and raised £729.15. • Parents, children and staff of the Magic Tower Montessori Nursery School collected total donations of £106.45 from their Christmas concerts.

90

“We decided to do something that would challenge us and hopefully encourage people to sponsor us and signed up for the 60K walk across the South Downs. We started the walk at 8am and finished 14 hours 42 mins later including stops! Lots of hills, stunning views and quite a few blisters. The last 5km were very tough as we were walking through woods uphill and in the dark but it was all made worthwhile by the amount we raised. For us the biggest goal was raising awareness for your charity and judging by the amount of sponsors we had we hope we have done that.”

Issue 67 | May to August 2015


General Fundraising • Patricia McIlwaine sent in a donation of £150. • Conor McIlroy raised £2,176.67 through taking part in the Virgin Money London Marathon 2015. • Joe McNulty took part in the Greater Manchester Marathon and raised £145.25. • Mark Mill donated £100 at a recent screening. • Ben Miller raised £2,115.70 through taking part in the Virgin Money London Marathon 2015. • John Meade sent in £366.50 made by the members of the Moore Place Golf Club. • 12-year-old Grace McAvoy took part in her own triathlon in support of her brother who has Wolff-Parkinson-White syndrome and raised £920. “She did amazing and we are all so very proud of her and the amount she has raised for Cardiac Risk in the Young. Her school also celebrated her achievement by doing an assembly on her and how she raised money for such a worthy cause.” Kirstie, Grace’s mum.

• Elayne and Christopher Moore took part in the CRY Heart of London Bridges Walk 2015 and raised £216. • Pam Mansfield at the Moose International Ladies Circle sent in a donation of £100. • Marie McLaughlin at Morrisroe sent in £100 from one of her suppliers in respect of their team taking part in the Three Peaks Challenge. • Natasha Bradshaw at Mortlake Crematorium sent in a donation of £4,487 in respect of a metals recycling scheme.

• Laura Popham at Mourant Ozannes, Hong Kong, sent in £653.25 raised through a rugby dinner and David Edgerton’s speech fee. • Staff at NatWest Mortgage Centre in Birmingham raised £186 through various organised events. • Sarah Neely raised £1,346 through taking part in the Virgin Money London Marathon 2015. • Students of New College, Oxford, sent in a donation of £187.50. • David Kennedy sent in £142.20 raised by the New Community Choir 1 following their first performance.

www.c-r-y.org.uk

91


General Fundraising • Clear Focus Productions sent in £125 from DCI Newsome of the Hertfordshire Police in lieu of a contributor’s fee. • Ms O’Brien took part in the Richmond Half Marathon and 10K 2015 and raised £441. • Peter Stokes sent in £225 raised at a dinner dance at the Old Rutlishians’ Clubhouse in memory of two of their players. • Steven Davidson at Oliver Clive & Co sent in £675 raised through Adam and his friends completing the Three Peaks Challenge. • Rob Ostler raised £861.32 through taking part in the Virgin Money London Marathon 2015. • Reverend B Cunningham at Oundle School, Peterborough, sent in £299.61 raised from collections in the chapel.

join the open mic session. First past the finish line was Wilmslow’s Tom Dawson in a time of 18 minutes 33 seconds, chased soon after by the husbands of two of Physiofit’s team, Matt Creasey and Tim Walton. “Competitors started the 5K challenge from Alderley Edge Park, which was full of festivities for the annual Alderley Edge May Fair celebrations, including five-a-side football matches and a range of music offerings, out towards Chorley Hall Lane before heading across fields and styles to come back along Welsh Row and returning via the fields to the park.

• Sarah Overington raised £2,208.58 through taking part in the Virgin Money London Marathon 2015. • Andy Owen, Charlie Owen, Jamie Owen and Leanne Wall took part in the CRY Heart of London Bridges Walk 2015 and raised £450. • Caroline, Ricky and James Peagam took part in the CRY Heart of London Bridges Walk 2015 and raised £305. • Fergus Penny took part in the Round the Isle of Wight Sail in 2010 and raised £1,625. • Rebecca and Andrew Perry took part in the CRY Heart of London Bridges Walk 2015 and raised £277. • Evan Phillips and Joe Street raised £2,808.40 through taking part in the Virgin Money London Marathon 2015. • General Dynamics sent in £100 in respect of Evan Phillips and Joe Street running 212 miles from Swansea to London, finishing with the Virgin Money London Marathon 2015. • Lisa Phillips-Fairclough took part in the CRY Heart of London Bridges Walk 2015 and raised £302.50. • Physiofit in Alderley Edge organised a village fun run and raised £531.65: “The Physiofit Alderley Edge May Fair 5K took place on Friday night with the largest number of competitors to date. Over 100 people took to the streets and fields of Alderley Edge, running, walking and Nordic walking before returning back to the park for celebratory drinks and to

92

“Director of Physiofit, Angie Jackson was asked to take over the hosting of the event at short notice, when it looked to be in danger of being cancelled this year. Angie said: ‘I was very happy for Physiofit to lead and manage the event, the whole Physiofit team has embraced the spirit of the occasion and we have been delighted with the turnout and particularly by the support of the May Fair committee, without whom none of the wonderful festivities throughout the weekend could take place. In particular, Glen Davies and I were incredibly moved and absolutely delighted to watch one of our patients cross the finish line after walking the 5km course; this was an enormous feat for him, following a serious car accident last year – next year he has promised to win it!” • Gina Sinclair at the Pickaquoy Centre sent in a donation of £248.44. • Emma Plewes took part in the Vitality Reading Half Marathon and raised £285.

Issue 67 | May to August 2015


General Fundraising • Parker Fitzgerald sent in £100 in support of Christian Preece taking part in the Cholmondeley Castle Half Ironman. • The Queensbury Academy in Dunstable sent in a donation of £1,538.39. • Christopher Reid sent in a donation of £100. • The Risman Foundation sent in a donation of £1,500. • The Robert Luff Foundation sent in a donation of £20,000. • James Robertson raised £1,900 through taking part in the Virgin Money London Marathon 2015. • Robins Lane Primary School in Merseyside held a dress down day and raised £191.78.

• Karen Stringer sent in £100 in appreciation of a recent screening at St George’s Hospital. • Andy Martin at Strutt and Parker LLP sent in a donation of £2,000. • Sarah Lindsay sent in £500 raised through a night of music and drama at Sunderland High School: “Each year Sunderland High School puts on a show, this year the children decided that they wanted to donate to CRY; they had been moved by some of the stories on your site and so it was agreed by the performers and participants that CRY ought to benefit. Rather than a set donation for ticket prices, the audience were asked to give what they thought the performances were worth. In one night, the performers raised £500.

• John Lawrenson, ACT Chairman at RollsRoyce DGS, sent in £170 raised through various charity events. • United Utilities in Warrington sent a matched funding donation of £250 in respect of Todd Ryan’s Football Marathon. • Rebecca Sannick sent in a donation of £175 from the Cratfield Dog Show. • Gordon Sear bequeathed £29,026.33 to CRY in his will. • Sevenoaks and District Football League sent in £125 representing the proceeds of this year’s charity cup competition. • Pupils, staff, parents, old Salopians and friends of Shrewsbury School took part in the Shrewsbury Half Marathon and raised £2,389.25. • David Smith raised £1,130 through taking part in the Virgin Money London Marathon 2015. • Joshua Smith took part in a bag packing event and raised £160.12.

“Students from Year 8 acted in various sketches – some of which they had penned themselves. The orchestra comprised pupils from Years 8 to 11. The choir consisted mostly of staff members, plus some pupils from Years 8, 10 and 11. Musical items included extracts from Tchaikovsky; Morricone’s theme from The Good, The Bad and The Ugly; Pirates of the Caribbean; a James Bond selection; a medley of tunes from Disney’s Aladdin and an exciting Thunderbirds finale! Songs performed by the choir also spanned the decades and the programme features numbers made famous by the lies of Toto, The Animals, The Beach Boys, The Beatles and Adele. Sketches included perennial favourites inspired by classics comedians, events and styles such as The Two Ronnies, Monty Python, Blackadder, Laurel and Hardy, Freddie Frinton – and even Bletchley Park!

• Lydia Smith raised £672 through taking part in the Virgin Money London Marathon 2015. • Mervyn Smith raised £851 through taking part in the Virgin Money London Marathon 2015. • St Bede’s School in Redhill sent in £394.06 raised by the pupils through a mufti day.

www.c-r-y.org.uk

93


General Fundraising “Grace Y said: ‘I think CRY is a worthwhile charity for many reasons; one being how they have helped so many people and saved lots of lives. An example of how they help is by assisting those who have lost close friends or family members to realise there is still things worth living for after the loss, and those people go on to raise amazing amounts of money to try to stop it from happening again.’” Danielle Greest. • Aaron Woolhouse took part in the Sunnydown School remembrance charity bike ride and sent in £100 from Ashley Preston. • Audrey Nice at Surrey Satellite Technology sent in total donations of £1,195.60 raised through fundraising intiatives including selling sweets from a “sweet tower” at the company’s 30th anniversary BBQ; a quiz night; payday bingo; Easter “eggstravaganza”; and a café penny collection. • Surrey Satellite Technology sent in £100 in respect of a payment from Trace Air Conditioning. • Joseph Tanner raised a total of £157.50 through taking part in the Brighton Marathon. • Glenn and Diana Thompson took part in the CRY Heart of London Bridges Walk 2015 and raised £200. • Clare Thornton raised £2,282.05 through taking part in the Virgin Money London Marathon 2015. • Jeff Markham collected a donation of £2,196.84 from Tring School in Hertfordshire raised during their Sixth Form charity week. • Rachelle Stretch sent in £1,385.03 raised through the Trinity Hall Boat Club ergothon, launched by CRY Patron Tom James MBE: “For many the clocks going back meant an extra hour in bed – not for Trinity Hall Boat Club (THBC). Instead it meant an extra hour to row as they undertook a 25-hour ergothon to raise funds for the refurbishment of their boathouse and for national charity Cardiac Risk in the Young.

“Double Olympic gold medallist Tom James, who studied at Trinity Hall from 2002–2007, returned to the college to help launch the event. He is a Patron of the charity and spoke about the two causes: ‘CRY’s goal is to provide preventative measures to reduce, and ultimately eliminate, cardiac complications that arise in children each year and particularly those that tragically end in death. Through sport in particular, CRY has built many successful bridges to bring awareness and support to its causes. The THBC ergothon is just such an event: it will help generate funds which will support CRY and of course the much-needed refurbishment of the college’s boathouse. This has been a great way to collaborate on important goals.’ “Over 75 students and former members of the boat club got involved. There were regular progress updates of how far they had rowed: halfway through and they had got as far as the Angel of the North (321km); threequarters of the way through and they had got as far as Belfast. The aim was to reach Denmark and by the end of the 25 hours the club had just made it: 646.1km in total. The club are pleased to have been able to do their bit to help improve their facilities and also to support a charity undertaking critical work. THBC Captain for this year, Hannah Karet, commented: ‘It is hugely rewarding to know that we are helping to support two really worthwhile causes. Thank you to everyone that took part, came and cheered us on and donated!’” • Doreen Turner held a car boot sale and raised £200. • United Utilities in Warrington sent in a matched giving donation of £780. • Joey Lalic at University College London Netball Club held a charity masquerade ball and raised £300. • Susan Sanderson at Unum sent in £300 in respect of a health claim conference. • Susan Sanderson at Unum sent in a donation of £222.95. • Tracey Sargent took part in the CRY Heart of London Bridges Walk 2015 and raised £600. • Rich Upshall took part in the 5K Scramble and raised £333.24. • John Hannett at Usdaw National Young Workers’

94

Issue 67 | May to August 2015


General Fundraising Committee in Manchester sent in £1,425.36 raised through various fundraising activities during their annual delegate meeting. “Every year Usdaw’s National Young Workers’ Committee pick a charity to fundraise and raise awareness for. This year the committee picked CRY. A big fundraising effort took place in April at the Union’s annual delegate meeting in Blackpool. The committee hosted a fancy dress disco where a raffle was held with prizes kindly donated by Usdaw branches and employers.

“The event was a great success and thanks to the committee’s fundraising efforts and the generosity of Usdaw members, £1,425.36 was raised. Usdaw are delighted to have had the opportunity to work with CRY and to be able to make a contribution to the excellent work that they do.” Suzette McGhee, Clerical Assistant. • Chris Wade sent in a donation of £100. • Joanne Waite took part in the CRY Heart of London Bridges Walk 2015 and raised £300.26. • Emily Walden took part in the CRY Heart of London Bridges Walk 2015 and raised £140. • Sam Weaver took part in a cricket match and fun day and raised £1,635: “Our aim was to raise money to fund the purchase of a defibrillator to be available at our local football development centre where the Milton branch of the North Staffs Lads and Dads play their home matches. The day was a great success and we raised a fantastic amount of money, over £4,000. We were

www.c-r-y.org.uk

lucky enough to actually have a defibrillator donated by our local Asda store when they heard about our plans! Because of the money raised during our event, we have also purchased a defibrillator to be used for away matches and arranged for defibrillators for a local golf and cricket club – with a large number of people to undertake training by West Midlands Ambulance Service – which has further enhanced the safety of our local community. We are now in a position to make our donation to CRY and are pleased to tell you that a total of £1,635 is to be donated to your charity.” • Wedlake Bell sent in £7,500 in respect of unclaimed fees. • CRY Patron Matt Wells sent in a donation of £100 in respect of taking part in the Prudential RideLondonSurrey 100. • Denise Western took part in the Great North Swim and raised £790. • Ian Whitehouse-Giles took part in the Coals to Benidorm event and raised £150. • Brona Whittaker raised £2,096 through taking part in the Virgin Money London Marathon 2015. • Karen Winfield took part in the Big Heart Bike Ride in India and raised £750. • Lisa King sent in £2,500 from Wix and District Young Farmers Club. • David Wood sent in £250 raised through a competition with colleagues, ex-colleagues and friends. • Tom Woodings raised £1,686.56 through taking part in the Virgin Money London Marathon 2015. • Adam Mowe nominated CRY to receive a donation of £1,000 made by his employers, World First. • WSP UK Edinburgh Office sent in a donation of £350. • Ellen Young raised £4,704.70 through taking part in the Virgin Money London Marathon 2015.

95


Fundraising Events 2016 Please contact the fundraising team on 01737 363222 or email events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events, visit www.c-r-y.org.uk/category/upcomingcryevents All participants in mass-participation events who contact the CRY fundraising team (whether they have their own place or a CRY charity place) will receive a welcome pack containing sponsor forms, information, helpful tips and either a T-shirt or vest (depending on the type of event).

2016 ASICS Greater Manchester Marathon April 10

The Greater Manchester Marathon is the UK’s flattest, fastest and friendliest marathon. CRY is able to obtain charity places and also welcomes any “own place” runners who would like to join the CRY team.

Brighton Marathon April 17

The Brighton Marathon is one of the UK’s favourite 26.2-milers. With the stunning backdrop of the sea in one of the country’s most vibrant cities, the race gets bigger and better every year. CRY has a number of charity places and also welcomes any “own place” runners who would like to join the CRY team.

Virgin Money London Marathon April 24

CRY welcomes anyone who has been successful in the 2016 public ballot who would like to run for CRY. Please get in touch if you are interested in a CRY place for 2017 and we will advise you when the public ballot opens for the 2017 marathon and when we are taking applications via CRunCH. Demand for Golden Bond charity places always exceeds the number we have available so please apply early.

everydayhero Milton Keynes Marathon and Half Marathon May 2

With 4,500 acres of woodlands, lakesides, parks and landscaped areas within the city boundary, Milton Keynes is the ideal venue for a Green

106

City Marathon. Contact CRY for more information or to register for a place.

Vitality Run Hackney Half Marathon May 8

Already one of the top 10 half marathons in the country, Vitality Run Hackney is the fresh new half marathon to hit the capital! Lace up for a flat run through Hackney and the iconic Queen Elizabeth Olympic Park. CRY can provide places for this event so if you would like to register or find out more information please contact us.

Spartan Race Series Throughout 2016

The Spartan Race series integrates obstacles with the natural terrain to create the best racing experience possible. There are three levels of adult races, as well as a range of races for children. CRY has places for these events so if you would like to register or find out more information please contact us.

London 2 Brighton Challenge May 28–29

Now one of the UK’s greatest endurance events – most of this year’s 3,000 challengers will walk the 100km, many will jog, and some will run it as an ultramarathon. However you take it on, it’s a test of determination and stamina. It’s real, no gimmicks, is achievable, and could be the most rewarding experience you’ve had for ages! Contact CRY for more information or to register for a place.

Bupa London 10,000 May 30

The Bupa London 10,000 starts and

finishes in St James’s Park and uses Green Park as its assembly area. CRY has a limited number of places for this event and welcomes any “own place” runners who would like to join the CRY team.

CRY Heart of London Bridges Walk June 26 (TBC)

Join us on the 10th CRY Heart of London Bridges Walk to raise awareness and funds. The 2016 walk will feature a new route passing by some of London’s most iconic landmarks. Please get in touch to register your interest and we will advise you when online registration opens.

Prudential RideLondon-Surrey 100 July 31

The Prudential RideLondon-Surrey 100 starts in Queen Elizabeth Olympic Park and then follows a 100-mile route on closed roads through the capital and into Surrey’s stunning countryside, on to a spectacular finish at The Mall. CRY has a number of charity places for this event and welcomes any “own place” cyclists who would like to join the CRY team.

Morrisons Great North Run September 11

The Great North Run is firmly established as the world’s greatest half marathon! CRY has a number of charity places and also welcomes any “own place” runners who would like to join the CRY team.

Parachute Jumps Assorted dates

For further details, please visit www.c-r-y.org.uk/charity-fundraisingchallenge-events

Issue 67 | May to August 2015


CRY Update 67 May to August 2015 Our Fundraisers The involvement of our fundraisers has been crucial to helping CRY raise awareness about young sudden cardiac death (YSCD). By fundraising for CRY our supporters have, in addition to highlighting our cause, helped to finance and develop our Bereavement Support Programme; the CRY Centre for Cardiac Pathology (CRY CCP); the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology at St George’s Hospital; and the CRY myheart Network to support young people living with potentially lifethreatening cardiac conditions. CRY also requires funding to support

medical research into YSCD; subsidise and expand our national screening programme; develop our education programme; and further our campaign for ECG testing of the nation’s youth. Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, literature, sponsor forms and other resources. If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.

Our Patrons

The urgency of CRY’s mission and the quality of our work has compelled many high profile personalities to give their time to become Patrons of our charity.

Current Patrons of CRY: Rob Andrew MBE,

John Barrowman MBE, Jeremy Bates, Ben Brown, Clive Clarke, James Cracknell OBE, Brian Dooher, Nick Easter, Jonny Evans, Baroness Ilora Finlay, Simon Halliday, Kathryn Harries, Michael Hoey, John Inverdale, Tom James MBE, Pat Jennings OBE KSG, Rob Key, Gary Longwell, Pixie Lott, Emily Maitlis, Graeme McDowell MBE, Professor William McKenna, Lee Mears, Bill Neely, Lawrence Okoye, Phil Packer MBE, Sir Steve Redgrave CBE, Joe Root, Andy Scott, Roger Taylor MBE, Professor Gaetano Thiene, Gregor Townsend MBE, Andrew Triggs-Hodge MBE, Andrew Trimble, David Walliams, Alison Waters, Matt Wells, Ray Wilkins MBE, Sir Clive Woodward OBE.

For more information visit www.cr-y.org.uk/charity-fundraisingchallenge-events or contact the CRY office for a fundraising ideas pack. There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we can also accept credit card donations over the phone. For further information telephone 01737 363222 or go to www.c-r-y.org.uk/donations All your help is greatly appreciated.

We can send regular information to CRY supporters via two distribution/mailing lists: 1. CRY Update magazine – postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Deputy CEO; many pages of supporters’ fundraising; articles about screening, research, pathology, raising awareness initiatives, mass-participation fundraising events, etc; and much more. 2. CRY enewsletter – sent monthly via email; includes a link to an electronic version of the CRY Update magazine, as-and-when each new issue of the Update is published. If you would like to subscribe to, or unsubscribe from, either of these two distribution/mailing lists, please let us know by: • Visiting the CRY website and completing the online subscribe/ unsubscribe form at www.c-r-y.org.uk/contact-form • Calling the CRY office on 01737 363222 • Emailing the CRY office at cry@c-r-y.org.uk

Sir Ian Botham OBE Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.” For more information about CRY’s Patrons, please go to www.c-r-y.org.uk/about-us/patrons

www.c-r-y.org.uk

107


Cardiac Risk in the Young Registered Charity No. 1050845

Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD). These include arrhythmogenic right ventricular cardiomyopathy (ARVC) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS). Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions. CRY aims to reduce the frequency

of YSCD by working with cardiologists and family doctors to establish good practice and appropriate screening facilities to promote and protect the cardiac health of our young. CRY believes cardiac screening should be accessible to all young people aged between 14 and 35. CRY also works to guide and support families and close friends affected by YSCD. We aim to put them in touch with people who have the knowledge and experience to answer their questions. We provide information to explain what the coroner does, practical guidelines to help with NHS referrals and advice on the procedures that usually follow a YSCD.

In addition, CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge. Detailed information about cardiac abnormalities and the range of literature available from CRY can be found on our website at www.c-r-y. org.uk/medical-information

CRY is grateful for grants or donations from trusts and foundations. We would like to thank the following for the generous support they have given us: ABBA Trust • Albert Hunt Trust • Biggart Trust • The Black Family Charitable Trust • Cecil Rosen Foundation • The Christopher H R Reeves Charitable Trust • The Davey Foundation • E C Graham’s Charitable Settlement • The Freemasons’ Grand Charity • Global’s Make Some Noise • Gwyneth Forrester Trust • Hasluck Charitable Trust • Hospital Saturday Fund Charitable Trust • James Tudor Foundation • The Kirkby Foundation • Ladbrokes in the Community Charitable Trust • Mazars Charitable Trust • Mrs H C Beer Charitable Trust • Munro Charitable Trust • Pennycress Trust • Pharsalia Charitable Trust • Sir Jules Thorn Charitable Trust • The Sobell Foundation • Tudor Foundation Inc • The Whitehead Monckton Charitable Foundation

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

@CRY_UK

CardiacRiskintheYoung


Turn static files into dynamic content formats.

Create a flipbook
Issuu converts static files into: digital portfolios, online yearbooks, online catalogs, digital photo albums and more. Sign up and create your flipbook.