CRY Update Magazine - Issue 68 by Cardiac Risk in the Young

Cardiac Risk in the Young News and Events | Raising Awareness | Our Fundraisers

Update 68 | September to December 2015

In this

Newsletter CRY International Conference 2015

| 18

Morrisons Great North Run 2015

| 20

CRY Durham Riverside Walk 2015

| 22

CRY Great Cake Bake 2015

| 24

CRY Parliamentary Reception 2015

| 28

Sure Run to the Beat 10K 2015

| 30

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

@CRY_UK

CardiacRiskintheYoung

CRY Update 68 September to December 2015 Editor Dr Steve Cox

Chief Executive

Deputy Editor James Slade

Newsletter Editor

As Deputy Editor of the Update it is my responsibility to put together this newsletter, and it is my ambition that you should find all the CRY news, events and fundraising in the following pages to be of interest. I always endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to get in touch with me if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section. I would appreciate hearing from you at james@c-r-y.org.uk or on 01737 363222 if you have any feedback or comments regarding previous issues. Thank you for your help.

Meet Our Representative News from the Chief Executive Alison’s Newsletter Extra CRY News CRY Screening Report myheart News CRY Centre for Cardiac Pathology (CRY CCP) Report

CRY Great Cake Bake 2015 24

Sara Santos Vidal PA to Professor Mary Sheppard

Our Fundraisers Raising Awareness in the Media Fundraising Events 2016

31 109 114

Fundraising Manager Head Office: Unit 1140B The Axis Centre Cleeve Road Leatherhead KT22 7RD

Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more. If you can supply a write up or photos for any fundraising activities that you have taken part in, please email the deputy editor at james@c-r-y.org.uk. Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised. Articles can only appear in the “Raising Awareness in the Media” section if we receive permission from the publishers to reproduce the article.

Sure Run to the Beat 10K 2015 30

Alison Cox MBE Founder

Images of CRY Patrons and Members of Parliament throughout have been highlighted in red.

3 4 12 13 14 16 17

Research News 18 Morrisons Great North Run 2015 20 CRY Durham Riverside Walk 2015 22 CRY Parliamentary Reception 2015

Contributors

Rebecca Zouvani

Inside Update 68

No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor. The Editor and Committee welcome letters but reserve the right to edit when necessary and to withhold publication Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of the Editor or Officers of the Committee. Articles pertaining to health related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

On the cover: for more details regarding the events shown, please turn to the corresponding page references below. Images are listed clockwise from top left: • The Dan Hughes Cycling Club rides from Wembley Stadium to the Britannia Stadium in Dan’s memory, page 63 • The Island Warriors take part in a dragon boat race in memory of Claire Keen, page 67 • Dave Benison and Micky take part in the Marathon des Sables across the Sahara desert in memory of their friend, Craig Wilson, page 97 • 170 medical professionals and students attend the 10th CRY International Medical Conference, page 18 • Alex Bruce, Joseph Kelly and Nick Bennett cycle from Portsmouth to the Pyrenees, page 100 • The CRY Great Cake Bake 2015 raises over £22,000, page 24 • 56 CRY runners take part in the Morrisons Great North Run 2015, page 20 • More than 200 CRY supporters take part in the CRY Durham Riverside Walk 2015, page 22 • Suzanne Morton holds a concert in memory of her son, Luke, for his 23rd birthday, page 77 • CRY Patrons Baroness Finlay, Simon Halliday, John Inverdale, Lee Mears and Andy Scott attend the CRY Parliamentary Reception, page 28 • Friends of Alex Hubbard organise a memorial football tournament in his memory, page 62 • The John Holmes motorcycle trial raises funds in memory of Ben Kanfiszer, page 66 • Zoë Hitchcock and friends organise a masquerade ball after Zoë suffered a sudden cardiac arrest, page 99

Copyright © 2016 Cardiac Risk in the Young. Registered Charity No. 1050845 A Company Limited by Guarantee. Registered in England No. 3052985 Registered Office: Helmores UK LLP, 13/15 Carteret Street, Westminster, London, SW1H 9DJ

Issue 68 | September to December 2015

Meet Our Representative Lily could not be revived and the consultant we saw that day said her death was most likely caused by a brain bleed. The first results we received following the post-mortem did not find a cause of death. Hearing this news added to our distress; and so in the early hours one morning I was looking for information on the internet and found CRY.

Melanie Webster Representative in Suffolk I became aware of CRY early in 2012 following the sudden death of my daughter Lily. We live in Stowmarket in Suffolk and on 16 January 2012 our world changed forever. Lily, aged 15, was in the final year of high school when she collapsed during a school trampolining session at the local leisure centre. Despite great efforts made by first-aiders and ambulance crews

I phoned later that day and although it was such a difficult call to make I was given care and advice that helped me and my family ask the right questions of the professionals around us. It allowed me to make sure Lily’s death was assessed by experts.

person it still seems impossible that she could no longer be with us. Her friends are now making their way in the adult world; I know that they wish she was with them, and that they are also great supporters of CRY’s work. I would like to see screening available to all young people, and CRY’s commitment to research gives me hope that it will bring the answers needed to stop this tragedy happening to other families.

Subsequently, her death was classified as sudden adult death syndrome. It also enabled me to arrange screening for my sons (then aged 17 and 13), my husband and myself, and at this time no conditions have been found. Since then I have been interested in raising awareness of the work of CRY in screening young people to detect those at risk of sudden death. We have funded two days of screening that took place in Stowmarket in 2014, two in 2015 and have two booked for 2016. Lily is greatly missed by family and friends. She was such a beautiful, fun-loving person that had so much more to do in her life that we continue to do this for her. Lily was so full of life and such an active young

www.c-r-y.org.uk

News from the Chief Executive Dr Steve Cox CRY Chief Executive

@Drstevenjcox www.facebook.com/ drstevenjcox A warm welcome to my very first newsletter as CRY Chief Executive, where you can find my roundup of CRY news and events from September to December 2015. Following this section, you will also find an article written by CRY Founder and former Chief Executive Alison Cox MBE. In this issue, Alison discusses our latest Grief booklet on page 12. Please note that Alison is referred to as Chief Executive throughout this publication when referring to events which took place in 2015.

September CRY takes part in National Fitness Day September 9 Not-for-profit fitness organisation ukactive invited CRY to be a charity partner for their National Fitness Day campaign in 2015. After some suggestions from the office we organised a rowathon, with all of our staff invited to take part. Rebecca Zouvani, CRY Fundraising Manager, reported: “It was good to see so many of the team take part, 18 of us. It went on for longer than we anticipated, with Alison, Founder and CEO, starting at 11am and the rowathon continuing until 4pm. I am not sure who rowed for the longest time but I know that Kerry Gray, Office Manager, and Paddy Wilson, Operations Director, did half an hour each, with most people doing 10–15 minutes.”

We have always worked hard to propagate the message that sport is not harmful, but it can exacerbate an underlying condition. Our message is simple: be active, stay active, but also make sure you’re aware of your heart health and any personal factors that might place you at risk.

Simon Halliday raises awareness at the BGC Charity Day September 11 The BGC CRY Patron Simon Halliday takes a turn on the Charity Day is phones with CRY supporter Roger Maddams an event held by and a BGC stockbroker the brokerage firm during which all commissions are donated to charity in memory of colleagues who died at the World Trade Centre in 2001. CRY was one of the charities supported in 2015 and we are very grateful to our Patron Simon Halliday and supporters Paul Daniels and Roger Maddams for agreeing to represent us on the day. They were accompanied by CRY staff Cara MacMillan and Nicola Taylor for the event.

Alison Cox supports Phil Packer’s Britathon September 14 CRY Founder and Chief Executive Alison Cox MBE was in London to support our Patron Phil Packer MBE during his marathon walk for the British Inspirational Trust (BRIT), Phil’s foundation to improve the lives of young people facing trauma. CRY is one of the charities his foundation directly supports. Phil originally walked the London Marathon on crutches over 14 days in 2009. He was told the previous year that he would never walk again after suffering spinal injuries whilst serving as a major in Iraq. He was once again congratulated by CRY Patron Sir Steve Redgrave CBE when

Issue 68 | September to December 2015

News from the Chief Executive he crossed the finish of his 2015 marathon, this time completed in just 14 hours with only his walking stick for aid.

Andy Scott cheers CRY runners at the Windsor Half Marathon September 27 CRY Patron Andy Scott, wife Ruth, father Peter and son Owen travelled to the Windsor Half Marathon to congratulate our runners at the event. There were 16 CRY supporters taking part in the Windsor Half Marathon and Running4Women Windsor 10K over the weekend, including our fundraising staffturned-fundraisers Nicola Taylor and Rosie Peploe. My thanks to every runner who took part for CRY.

October Over 200 take part in CRY Durham Riverside Walk October 9 The sixth CRY Durham Riverside Walk was a little chilly, and we are grateful to everyone who helped the event make a big impact in the north east on a misty morning. Many supporters continue to attend every year since the event was first instigated by Jeff Morland and Steve Percival, but there were many fresh faces as well. It would be impossible for CRY to put on an event of this size so far from our base in Surrey without the fantastic local support we are offered every year. Steve Percival was unfortunately unable to attend for the

www.c-r-y.org.uk

first time, but he made a big contribution nonetheless through an interview for Bishop FM promoting the walk with free CDs of charity single “Don’t CRY”. Coverage was also featured in many local publications including The Northern Echo. Thank you to all the CRY supporters who ensured the event was a sixth straight success. For a report and photos from the walk please see the article on page 22.

170 register for CRY International Medical Conference October 9 It was a pleasure to speak at the 10th annual CRY International Conference in 2015. My presentation gave me a great opportunity to show the assembled doctors, physiologists and students not only how CRY’s research and screening programmes developed over the past 20 years, but also how important it is to provide appropriate support to affected families and continue to raise awareness about young sudden cardiac death. I also emphasised the tremendous impact Professor Sharma has had on CRY’s research programme since 1996, and the impact it is having on policy and practice in the UK and throughout the world. I was joined by another fantastic line-up of eminent cardiologists and CRY Research Fellows – many of whom are well on their way to becoming recognised in the field themselves. Very special thanks to those guest speakers who travelled from abroad to talk in London: Professors Domenico Corrado (Italy), Mats Börjesson (Sweden) and Angeliki Asimaki (USA). For videos of all the presentations during the conference please visit www.c-r-y.org.uk/conferencevideos-2015 For a report from the event please see the article on page 18, or on page 2 of CRY’s Research Highlights 2015 newsletter.

From top: CRY Consultant Cardiologist Professor Sanjay Sharma, CRY Consultant Cardiac Pathologist Professor Mary Sheppard, myheart Consultant Cardiologist Dr Michael Papadakis, Professor Domenico Corrado and Dr Elijah Behr

News from the Chief Executive BBC West Midlands interview the CRY Wolves October 16 Pardeep Nagra (pictured) was 26 years old when he died in April 2008 and his family and friends have been raising funds and awareness for CRY across the West Midlands since 2009. Pardeep’s brother Kully was interviewed by presenter Caroline Martin at BBC West Midlands’ studio on behalf of the “CRY Wolves” – who were making the Morrisons Great Birmingham Run more fun and much more difficult for themselves by dressing up as superheroes to encourage donations. Over an extended interview Kully explained the importance of CRY and our mission to screen young people for cardiac conditions like the one that affected Pardeep, which is why they wanted to raise as much money as possible through the half marathon on October 18. The Nagra family organised their first CRY screening weekend in 2013 at the Eclipse Kickboxing Gym in Wolverhampton where Kully is a trainer, and screened another 218 young people in July 2015 – with more screenings booked for 2016.

BBC Radio Leeds talk to Embling family at Rory’s pub October 16 Rory Embling (pictured) was a practising solicitor and an active sportsman when he died aged 26 from sudden arrhythmic death syndrome in May 2014. His parents, Chris and Anne, were visited at their home by BBC Radio Leeds reporter Charles Heslett to explore the tribute to Rory they had built in their back garden. Chris and Anne constructed a pubstyle lounge called “Rory’s Return” which they now use to fundraise for CRY screenings. It has two rooms, a working bar and walls full of celebrity memorabilia he would enjoy. Rory’s Return had been entered into the competition for Home Leisure Direct’s “Games Room of the Year Award”, which after a huge wave of support from across

West Yorkshire and around the country it went on to win at the end of October. The prize money went straight to Rory’s memorial fund. The story ran in several regional newspapers and generated a lot of awareness, which Chris told the BBC is their other main aim besides fundraising: “I taught physical education for 32 years,” he explained, “I didn’t know that young people died from nothing.” To explore Rory’s Return and watch the Emblings receive their award please visit www.youtube.com/ watch?v=Y3vbC8hwASY

Interview with Radio Jackie October 16 Radio Jackie, broadcasting across south-west London and north Surrey, invited me to their Kingston studio for European Restart a Heart Day. I was asked about how heart conditions affect young people and the best ways to prevent future tragedies. In only a few minutes we managed to cover a lot of ground. I described the prevalence of heart conditions found at CRY screenings; that serious heart conditions are found in 1 in 300 young people, and less serious conditions are found in 1 in 100. I pointed out that Jade Moore, the England footballer, was identified with a problem and once it was corrected she was back competing for her country. I went on to describe the differences between American screening guidelines and CRY’s more comprehensive procedures, directing listeners to www.testmyheart.org.uk for further information about our national programme. For my interview please visit news.radiojackie. com/2015/10/today-marks-european-restart-heart-day. html

Sylvia and Leon Pezzack on BBC Radio Cornwall October 17 I recorded another interview on October 16 for broadcast the next morning on BBC Cornwall’s Breakfast with Donna Birrell. The interview was for the memorial row taking place between Newlin and Mousall on October 17, which remembers Debbie Rendle, who died aged 38 in February 2007. Later, Debbie’s parents Sylvia and Leon Pezzack were interviewed by reporter Claire Rowley about their daughter’s death. I outlined the key CRY objectives to improve awareness, support, screening and research, and spoke about the difficulty of recognising signs and symptoms like dizziness

Issue 68 | September to December 2015

News from the Chief Executive

Debbie Rendle was a keen rower, and Cornish champion for 13 consecutive years in the ladies’ pair paddles

and black-outs – in the minority of cases where there are any symptoms to recognise. Donna Birrell read from a listener’s email, which described her “fluke” diagnosis of a narrowed aorta at 23, despite reporting symptoms of breathlessness since her childhood. She was told the condition – if left undiagnosed – would have reduced her life expectancy to 40.

Sylvia and Leon Pezzack went on to tell Debbie’s story. The mother of three had complained of indigestion that day, and in the early hours of the following morning was found collapsed by her husband on the bathroom floor. Sylvia and Leon described Debbie’s treatment for mild epilepsy when she was younger, because she used to pass out after sudden shocks, pain or exhaustion. These could potentially have been misdiagnosed symptoms of her heart condition.

“Word on Cardiac Risk in the Young” broadcast October 19 An interview with me @Drstevenjcox was feature of the week for the Word on Health national radio network, which syndicates to around 90 stations across the UK and boasts a listenership of 6.5 million. The recording was published in an article on their website, along with a link to CRY’s medical booklet and our statement in response to the July recommendation against national cardiac screening by the National Screening Committee (NSC). I underlined the frustration of years of engagement with the NSC, who haven’t made the progress they should have, and argued that most significantly there is still a perception that young sudden cardiac deaths don’t occur with any considerable frequency. My main message was: “This is a significant cause of death in young people, so it needs to be taken seriously.” For Word on Health’s article, which includes my interview, please visit www.wordonhealth.com/on-air-articles. php?id=364

BBC South East Today speak to Steve Edwards October 22 I appeared on BBC South East to support an interview with Steve Edwards about his 17-year-old daughter Annie

www.c-r-y.org.uk

(pictured), who was with friends the night she died from sudden adult death syndrome in February 2015. The segment focussed on the issue of making cardiac screening available for young people, referring to the UK National Screening Committee’s recommendation against national screening as a result of “uncertainties about the overall benefit”. Since Annie’s death, Steve has begun fundraising for CRY, and told the BBC: “A national screening programme would be a wonderful thing to introduce. It’s not going to help Annie now, but there are many, many more young people every year who could be helped by such a programme.” The report also made mention of the screening implemented by Tonbridge Angels FC after the death on the pitch of trialist Junior Dian in July that year, aged 24. I appeared on the programme to stress the number of young sudden cardiac deaths in the UK, and the importance of improving this country’s infrastructure so that every young person can be tested if they want. As Steve movingly argued: “Those few that are picked up, surely would rather be picked up than something similar to what happened to Annie happening to them.”

Mims Davies MP leads adjournment debate on heart screening in Parliament October 27 It was fantastic to see the work of CRY and our screening programme talked about Mims Davies MP so strongly in the House of Commons. This was an excellent debate led by Mims Davies MP, from Eastleigh, on behalf of Graham and Anne Hunter in memory of their daughter Claire, who died aged 22 in March 2013. Mims had taken part in the Morrisons Great South Run for CRY in Claire’s memory only two days earlier. The debate had cross-party support from many MPs who had either been affected personally or were representing their constituents. Mike Gapes MP spoke about the impact on friends as well as family after his 19-yearold daughter, Rebecca, died suddenly in May 2012, saying: “It

Mike Gapes MP

News from the Chief Executive is a great grief and something that is with me all the time. I wish that people would take this issue more seriously.” The Parliamentary Under Secretary of State for Public Health, Jane Ellison MP, remarked on “clear evidence of the strength of feeling across the House”, however, went on to answer the debate by largely echoing the statements of the National Screening Committee (NSC). The NSC report directly contradicts current clinical practice and policies in the NHS, as well as European Society of Cardiology and American Heart Association screening recommendations, and it was a disappointment to hear those negative conclusions repeated. Whilst we acknowledge the challenge of implementing a nationwide cardiac screening programme for young people, this must be kept in context. Screening programmes will always have challenges because you are potentially introducing a risk to a person at a time when they do not feel at risk, with the aim of preventing a much greater consequence. This is one of the reasons why CRY has always stressed the importance of expertise when conducting these investigations.

Sir Ian Botham grants £20,000 for ECG machines November 19 We were hugely grateful to receive a grant of £20,000 from CRY Honorary President Sir Ian Botham OBE’s charitable trust, Beefy’s Charity Foundation, for the purchase of four ECG machines. CRY urgently needed more machines to accommodate the increasing demand for screening – we held an unprecedented 32 screenings in October alone last year. The machinery donated by Sir Ian will be kept in the dedicated mobile screening van funded by Beefy’s Charity Foundation in February 2014. For more information please turn to the CRY Screening Report on page 14.

For links to the video and full transcript of the debate please visit www.c-r-y.org.uk/crys-statement-regardingdebate-cardiac-screening-for-young-people

November Autumn National myheart Meeting November 1 13 people registered for the second myheart meeting of 2015, which was held on November 1 at the Holiday Inn, Sutton. Global’s myheart Cardiologist Dr Make Some Noise generously Michael Papadakis sponsored this event. Alan Jones was the counsellor for the morning session and myheart Cardiologist Dr Michael Papadakis answered informal medical questions in the afternoon.

ECG machines and screening van funded by Beefy’s Charity Foundation with me and the CRY screening team

www.yscd.org.uk campaign launched November 23

Pixie Lott holds fundraiser for CRY November 5

On the first day of CRY Raising Awareness Week 2015 we launched a new campaign to force the Government to accept the number of young sudden cardiac deaths (YSCDs) in the UK. It became clear this was necessary following the publication of last July’s National Screening Committee (NSC) recommendation not to screen for conditions causing sudden cardiac death in young people, which cited a UK incidence rate of less than 1 a week. We thought it was more than that in 1995, and our research has since shown it is more than 10 times that.

Patron Pixie donated the proceeds from her “Ellagaru” monthly acoustic night for up-and-coming acts to perform. The event is held at The Oliver Conquest pub in London.

The NSC’s reliance on outdated and flawed data – and refusal to consider the modern, UK-based, internationally admired CRY data made available to them – made us consider how we could harden our argument to force the Government to listen.

Issue 68 | September to December 2015

News from the Chief Executive

CRY Parliamentary Reception speakers clockwise from top left: CRY Chairman Hugh Mulcahey, Minister for Sport Tracey Crouch MP, CRY Founder Alison Cox MBE, CRY Patron Baroness Ilora Finlay, CRY Consultant Cardiologist Professor Sanjay Sharma and CRY Patron John Inverdale

We have now asked for anyone who has suffered a young sudden cardiac death in their family to visit www.yscd. org.uk to give us permission to present the name of the person who died to the Government. Every young person whose name we can show them adds power and strength to our voice. Our announcement of the campaign, including a video in which I explain the need for families’ support, was publicised on PoliticsHome at www.politicshome. com/organisation/page/cardiac-risk-young/crys-yscdcampaign For more information about our campaign, or to give us permission to use the name of the young person who has died in your family, please visit www.yscd.org.uk

CRY Parliamentary Reception November 25 Our 10th annual Parliamentary Reception was especially politically well-attended in 2015, with more than 40 MPs visiting the Terrace Marquee at the House of Commons for the evening’s event. We were delighted that Tracey Crouch MP, Minister for Sport, agreed to speak at the reception about the importance of screening, and she was joined by CRY Patron and cross-bench peer Baroness Ilora Finlay. Our Chairman Hugh Mulcahey, who again acted as MC for the night, also introduced Founder and Chief Executive Alison Cox MBE; Consultant Cardiologist Professor Sanjay Sharma; Patron John Inverdale; and myself. John had travelled all the way from Durham University that afternoon to give his speech at the event. Thank you again to all of our speakers and everyone who travelled to attend. For more information please turn to page 28.

www.c-r-y.org.uk

To listen to the speeches please visit www.c-r-y.org.uk/cryparliamentary-reception-2015

CRY Great Cake Bake raises over £22,000 November 27 Across the country, scores of CRY supporters took part in our nationwide Great Cake Bake during CRY Raising Awareness Week. We always see some fantastic photos from the bake sales and coffee mornings held during the week and it’s a pleasure to hear how well everyone’s events went in 2015. I would like to thank everybody who helped to organise ovens and manage stalls and stands; CRY supporters have so far raised over £22,000, beating last year’s total, and money is still coming in. Well done everyone. For write-ups and photos from the events please turn to the article on page 24, or visit www.c-r-y.org.uk/cry-greatcake-bake-2015

News from the Chief Executive December Kenny and Maralyn Bowen on BBC Radio Tees December 1 CRY Supporters Kenny and Maralyn Bowen took part in an hour-long programme on BBC Radio Tees, interviewed by presenter John Foster about the death of their son Ian (pictured), aged 19, in October 1996, and their subsequent commitment to help CRY. Kenny recounted the night Ian died; he received a call to go to A&E less than an hour after Ian went out with friends. Ian had been diagnosed with Wolff-ParkinsonWhite syndrome just months earlier after seeing a specialist for an occasionally racing heart, but the corrective ablation surgery wasn’t seen as urgent by the hospital and he died before his operation was scheduled. Maralyn described how she found bereavement support through Alison after she couldn’t get help through her GP, going on to become a CRY Bereavement Supporter herself. Kenny was unwilling to accept support, but instead Alison asked if he could write to trusts for CRY funding which became a type of therapy. Kenny and Maralyn have now raised over £70,000 for screening in their community, and over £475,000 from trusts for CRY core funding. They spoke at length about CRY’s progress over the years, watching our incidence figure climb from 1 to at least 12 deaths a week as awareness has grown and knowledge has increased. “Ian wasn’t a one-off,” Kenny explained. “He was special to us, but how he died’s not special. It happens every week.”

John Inverdale visits CRY office December 2 We were very glad to receive our Patron John Inverdale at the CRY office early in December. He had kindly offered to drop by to meet the staff and record our answerphone message. Although we are increasingly contacted through email, many individuals and families will need to speak to

us directly and so it’s vitally important the first voice heard is both clear and professional. Our thanks to John for lending us his presenting expertise.

Unum Parliamentary Reception December 2 Alison and I were invited to Unum’s reception at Parliament where Peter CRY Trustee Peter O’Donnell with Alison and me at the Unum reception O’Donnell, CEO of Unum and a CRY Trustee, highlighted the work they do for charities including CRY. Throughout 2014, Unum helped raise awareness and funds for CRY following our nomination as their national charity, and many of their staff went the extra mile for our cause (literally, in several cases), raising over £35,000.

Christmas Grief booklet launched December 9 A fifth booklet in CRY’s Grief series for the families of victims of young sudden cardiac death was sent out to everyone on our mailing list with issue 67 of the CRY Update in December. The booklet’s 14 chapters are each written by a CRY Bereavement Supporter about how they have learned to approach the agony of Christmas after the sudden death of their child, partner or sibling. We felt that it was very important for everyone in contact with us to receive this resource. We hoped it then might not only offer some small assistance to those who suffer at Christmas, but also help those supporters and fundraisers who are not bereaved – but know someone who is – to better understand the intensity of grief throughout the festive period. For more information please turn to page 13, or to read the booklet online please visit issuu.com/ cardiacriskintheyoung/docs/christmas_booklet If you would like to request a hard copy of the Christmas booklet, or any of the other booklets in our Grief series, please contact the CRY office.

Issue 68 | September to December 2015

News from the Chief Executive John Inverdale thanks CRY supporters for screening 23,000 young people in 2015 December 10

progress in 2015, and throughout the 20 years prior. “I am reminded of how much has changed, and what enormous progress has been made,” Alison begins, “change that has been inspired, and facilitated, by all of you.”

CRY Patron John Inverdale made the most of his visit to the office on December 2, recording a special message of thanks for all the amazing work our supporters put into fundraising for screenings and organising the events. For our 20th anniversary as an organisation, we hoped to screen 20,000 young people for heart conditions in 2015 – to screen 23,384 is the most incredible achievement.

To watch our message please visit www.c-r-y.org.uk/cryschristmas-message-2015

This means that last year alone, more than 70 young people will have been diagnosed through CRY screenings with lifethreatening cardiac abnormalities. They can now receive the medical treatment and advice they need to get on with their lives without a hidden risk. More than 200 will have had less serious conditions identified, which might not pose an immediate risk but could cause problems in later life, and can now be treated. To echo John’s message: whatever you did, it all helped to save young lives. Thank you.

The death on the pitch of 29-year-old Keighley Cougars player Danny Jones in May 2015 shocked the Rugby Football League (RFL) and their response was to mandate cardiac screening across their three top divisions. Danny’s widow Lizzie was invited to sing at Wembley for the Challenge Cup final in August, and presenter Mark Chapman stressed the importance of cardiac screening before her performance. In December, Lizzie sang again for her husband at the BBC Sports Personality of the Year Awards, and this time Gary Lineker drew attention to her campaign for screening.

CRY Christmas Message December 16 CRY Founder Alison Cox MBE and I recorded a Christmas message to mark CRY’s 20th anniversary year. It was Alison’s final message to our supporters as CRY Chief Executive, and was published across social media on December 16. We spoke in the video about how grateful we are to all of the supporters who have helped us achieve astonishing

Lizzie Jones raises awareness on BBC Sports Personality of the Year Awards December 20

Whilst CRY was not mentioned, we are working closely with the RFL to introduce their screening programme and there was a huge social media response to CRY after the broadcast.

Kevan Jones MP reflects on CRY’s 20th anniversary December 21 As long-standing Chair of the Cardiac Risk in the Young AllParty Parliamentary Group (CRY APPG), Kevan Jones MP has Cardiac Risk in the Young demonstrated a commitment to APPG Chair Kevan Jones MP reducing the incidence of young sudden cardiac death (YSCD) since the CRY APPG’s formation in 2002. Membership of the CRY APPG fluctuates as MPs come and go, but the group has regularly boasted over 100 MPs since 2007 and had a real impact in the crucial debates for the creation of a chief coroner post and introducing automatic NHS screening for affected families. In a thoughtful piece following the CRY Parliamentary Reception 2015, Kevan looked back on CRY’s achievements over the last 20 years. For Kevan’s article please visit www.politicshome.com/ health-and-care/articles/opinion/cardiac-risk-younghouse-commons/kevan-jones-mp-marking-20th

www.c-r-y.org.uk

Alison’s Newsletter CRY at Christmas We moved into our first office just before Christmas 1999. We only had a few bereaved families involved with CRY then and the one thing they were all dreading was Christmas. I resolved – and it is still true today – that CRY would never celebrate Alison Cox MBE the Christmas period in CRY Founder any way in the CRY office. The suffering that we were aware Christmas brings our families inspired our Christmas following a young sudden cardiac death booklet. It also deeply affects those that love them and want to support them but are not sure how, which is why we circulated the booklet to every person who is part of CRY. Christmas is something that no one can escape from. For many weeks it is recognised in the smallest provincial village store right through to the largest city shopping arcade. A family’s anniversaries or days that revive special memories/celebrations/achievements are very personal events that are deeply significant to the family and friends of the young person who has died. It is the family’s chosen way of ensuring that they are never forgotten. Christmas is an annual event imposed, impersonally, on us all. We need to flee the country to escape it – and indeed, many bereaved families choose to. Christmas is traditionally a time of reunion of family and friends to share times past and catch up with the present. The ruthless demands of joyfulness, celebration and peace make it an almost impossible task for our bereaved families, coping with catastrophic grief, to participate with any conviction. The insight that our Bereavement Supporters shared in the Christmas booklet, the coping strategies developed (sometimes over many years), provided both practical and emotional options to consider. Most importantly of all they emphasised that it is okay to grieve: you do not need to artificially immerse yourself in the bright lights and gaiety of the season; you can allow yourself to be in the moment, wherever it takes you.

20 years of... I found 2015’s Parliamentary Reception, my last as CRY’s CEO, an intense mix of emotions – my typical worries; would the MPs come/would our guests be happy/ would John Inverdale’s train from Durham get him there on time…? But also, last year, coupled with unfamiliar emotions – was my last speech going to be appropriate or too long/short/difficult…? Would I become nostalgic? In the event, more MPs came than ever before; everyone stayed longer than ever before; and John, as ever, was superbly punctual and gave a fantastically deep and meaningful speech. When I spoke I felt I wanted to emphasise that after 20 years CRY’s original goals of raising awareness, screening, research and support were still as clear and important now as they had ever been. Nothing had changed in the ambitions we aspired to, but the opportunity provided by our families both with their fundraising and their inspiring initiatives had enabled us to make massive progress in the last two decades. Professor Sanjay Sharma, who first declared his support for CRY when he moved to St George’s for his final years of medical training in 1996, has acquired numerous accolades but most importantly of all has taken CRY’s research to now being recognised internationally on the world stage. The support of our MPs, most particularly Kevan Jones as Chair of the Cardiac Risk in the Young APPG, has helped us to develop a significant raising awareness campaign every five years. Dr Steve Cox, CRY’s new CEO, has refined the screening programme which in 2015 accommodated an astonishing 23,000 young people. We have produced a groundbreaking set of booklets to support the individual aspects of suffering of a grieving mum, dad, sibling and partner – that has never been approached in this format before – and we have sent out over 12,900 booklets in total since the first publication, Sibling Grief, in 2012. I would like to conclude this, my first writeup, by saying how much we owe the CRY Trustee Board who have given us immense support whenever we most needed it. We are truly fortunate in having Trustees with such wide-ranging experience and Hugh Mulcahey, himself a bereaved dad, as our outstanding Chairman. Best wishes,

Professor Sanjay Sharma, Patron John Inverdale, Kevan Jones MP and myself at the CRY Parliamentary Reception 2015

Issue 68 | September to December 2015

Extra CRY News Christmas Grief booklet CRY launched a new booklet for families in December 2015, Christmas following a young sudden cardiac death, compiled by CRY Founder and former bereavement counsellor Alison Cox MBE. The booklet comprises 14 chapters written by CRY Bereavement Supporters, who describe their personal experiences of facing the festive season after their child, partner or sibling has died suddenly. Christmas following a young sudden cardiac death is available at issuu. com/cardiacriskintheyoung/docs/ christmas_booklet or in hard copy for free from the CRY office. From 7 December 2015, the booklet was distributed to 9,000 individuals and families who have previously been involved with CRY. During the six-week lead up to Christmas the resource was available online, and website visitors spent over 24 hours reading the publication in December alone.

CRY Christmas cards

Cartridges4Charity

2015 was another successful year for CRY Christmas cards, which raised over £18,500 for CRY’s core funding initiatives.

CRY received a total of £3,404.95 from Cartridges4Charity in 2015. They are a free recycling service for printer cartridges and mobile phones. CRY has annually received a third of all funds raised by the scheme for over a decade, as did two other charitable causes. In 2016, Cartridges4Charity informed us they would thenceforth be fundraising for other causes. We are very grateful for their many years of support.

We would like to say a huge thank you to Katy Turberville and Janette Pollard, our volunteers on the Christmas card committee. Each year the committee carefully selects the new designs. In 2015 we had a wide range, offering specially commissioned cards from Impress Publishing and Oak Publishing along with several winter scenes painted by CRY supporter John Bennett in memory of his daughter, Laura. Thank you to all our supporters who donated their time to help sell CRY Christmas cards in shops: Carol Finch; Frances Presley; Carl and Eunice Johnson and Janette Pollard at Cards for Good Causes shops; Kitty Hartnell at Ealing Charity Card Shop; and Anna Aristodemou at A Cut Above hair salon. We would also like to thank all those who sold CRY Christmas cards on our behalf this year. We really appreciate the time you have spent selling these amongst your friends and relatives and at fundraising events. Thank you to everyone who purchased cards in 2015. The new designs for 2016 will be available to purchase in September.

www.c-r-y.org.uk

eBay for Charity CRY supporters raised £2,254.08 through eBay for Charity in 2015. If you would like to raise funds for CRY through eBay then please visit pages. ebay.co.uk/ebayforcharity/index. html

easyfundraising and easysearch During 2015, CRY supporters raised £392.50 by shopping and searching online with easyfundraising and easysearch. By using cry.easysearch.org.uk every time you search the web, CRY receives 50% of the fees paid by advertising sponsors, and you can raise money for CRY while shopping online through easyfundraising.org. uk/causes/cry

CRY Screening Report “I am pleased to confirm that we have exceeded our 20th anniversary target of screening 20,000 young people in 2015 – screening an unprecedented 23,384! Thank you to all of the families, supporters, volunteers and staff who made this incredible achievement possible.”

Between September and December 2015 CRY screened over 8,000 people, mostly through family memorial screenings.

Dr Steve Cox, CRY Chief Executive

At our regular CRY clinics 1,519 young people were screened. Clinics were held at Foyle College, Derry, and the University of Ulster, Coleraine and Jordanstown campuses (funded by the Northern Ireland Fund); Noble’s Hospital, Isle of Man (funded by Craig’s Heartstrong Foundation); and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology at St George’s Hospital, London (one funded by Global’s Make Some Noise and one by the Patrick Evans Foundation). Sports screenings included: Burnley FC, Rugby Football League, England Rugby U17/18s, Welsh Rugby Union, Cardiff Blues RFC, Scarlets RFC, Yorkshire Carnegie RFC, ONE Pro Cycling, Team Sky Cycling, Bath EIS, Birmingham EIS, Essex CCC and the Lawn Tennis Association. A total of 702 athletes were screened.

At 30 family memorial screenings screenings, which were held at St 4,894 people were screened. These Olave’s Grammar School, Kent; were held in memory of Alex Reid Blackpool Sixth Form College, (Sheffield), Lewis Marsh (Surrey), Lancashire; Durham University, John Millar (North Ayrshire), Joanne County Durham; Forest School, Fotheringham and Andrew Macleod London; and St Thomas’s C of E (Stornoway), Adam Donnelly Primary School, Kent. (Wrexham and Anglesey), Thomas Fleetwood (Essex), Dale TennentAt 3 further private screenings 401 Butler (Hertfordshire), Sara Pilkington young people were screened. These (Durham, Stockport, Crewe and were held in Billingshurst, West Chester), Ben Daniels (Bromley), Sussex; Cinderford, Gloucestershire; Nathan Butler (Staffordshire), Harry and Berkhamsted, Hertfordshire. Faulkner (Berkhamsted), Andrew Parr (Preston), Gideon Baws (Southend-on-Sea), What happens at a screening? Claire Reed (Eastleigh), Jenny Bucknell (Monmouth), David Moss (Stoke-on-Trent), The basic test is an electrocardiogram (ECG) which is a simple non-invasive and Matthew Dewhirst (Nantwich), painless test that examines the electrical Owen Morris (Cardiff), Chloe activity within the heart. The ECG involves Waddell (Cheshire), Tom lying down quietly and only takes five to Clabburn and Claire Prosser ten minutes. Small stickers are placed at (Ealing), Christian Thunhurst strategic points on the chest, arms and (Guildford), Stuart Cutler (West legs. Flexible leads (called electrodes) that Lothian), James Nicholas extend from the ECG machine are then (St Helens), Caradoc James attached to these stickers. The electrical (Tenby), Harry Dubois (Oldham) rhythm of the heart is recorded and printed and Josh Fell (Beverley). out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in A total of 596 young people conjunction with a personal and family were screened at 5 school history questionnaire.

The CRY National Screening Programme is supported by the CRY Research Fellowship Programme. In 2015 the following ringfenced funds made significant contributions to support CRY’s research. • The Tom Clabburn and Claire Prosser

Memorial Fund

• The Jannik Lam Memorial Fund • The Rebecca Phillips Memorial Fund

• The James Haggerty Memorial Fund

• The Sarah Simpson Memorial Fund

• The Stewart Howard Memorial Fund

• The Hannah Turberville Memorial Fund

• The Joe Kellogg Memorial Fund

• The Northern Ireland Memorial Fund

The CRY Research Programme was also supported by a £20,000 donation from the Robert Luff Foundation and a €30,000 donation from Fundación MAPFRE.

If a more detailed image is needed (about 5–10% of individuals), an echocardiogram can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform. The screening programme is under the aegis of Professor Sanjay Sharma.

Issue 68 | September to December 2015

CRY Screening Report Echo machine and six CRY centre clinics funded in memory of Tom Clabburn and Claire Prosser On 5 November 2015, the family of Tom Clabburn and Claire Prosser funded an echocardiogram and six screening clinics between January and March 2016 at the CRY Centre for Inherited Cardiovascular Conditions at St George’s Hospital, London. The machine is pictured at the CRY centre with Founder Alison Cox MBE, Research Fellow Dr Tracey KeteepeArachi and Patron Ben Brown.

Full mobile screening unit funded in memory of Dean Mason On 3 December 2015, the family of Dean Mason funded three ECG machines, an echocardiogram and a screening van for a fully equipped mobile screening unit. The mobile screening unit is pictured with the Mason family and the CRY screening team at the screening held on 23–24 January 2016 in Whitland, Wales, where 196 young people were screened in Dean’s memory with the new equipment.

Four ECG machines donated by CRY Honorary President Sir Ian Botham OBE On 19 November 2015, Beefy’s Charity Foundation, the charitable trust founded by CRY Patron and Honorary President Sir Ian Botham OBE, awarded a grant to CRY to fund four new ECG machines. This follows the 2014 grant from Beefy’s Charity Foundation for the purchase of a screening van, which will now be equipped with the machines and used primarily to screen young sportsmen and women by CRY Elite Sports Screening Manager Rebecca Osborne. Since Sir Ian’s first involvement with CRY in 2001, accepting a cheque for funds raised in memory of seven-year-old Sarah Louise Williamson, he has consistently pushed the importance of screening for young people, particularly in sport. Sir Ian notably accepted the position of Honorary President of CRY’s first Centre for Sports Cardiology in 2002, was the face of the CRY Philips Test My Heart Tour in 2009, and in 2014 wrote to newspapers across northern England to raise awareness of cardiac screening and the CRY Durham Riverside Walk – the event’s biggest year. The Beefy Foundation’s consecutive £20,000 donations in 2014 and 2015 are only one aspect of Sir Ian’s 15-year support.

www.c-r-y.org.uk

CRY Founder Alison Cox MBE speaks to Patron Sir Ian Botham OBE on the CRY Philips Test My Heart Tour 2009

News Exercise debate with Dr Michael Papadakis On the morning of 21 April 2015, myheart members Joseph Tanner and Paula Beck were filmed at St George’s Hospital in discussion with myheart Cardiologist Dr Michael Papadakis about exercise with a cardiac condition. Both Joseph and Paula have been diagnosed with Brugada syndrome and have an implantable cardioverter defibrillator (ICD) fitted – yet were hugely enthusiastic about fitness before learning of their condition and have since been keen to establish how to exercise within safe limits. Dr Papadakis introduces the video by explaining that “Cardiac Risk in the Young is dedicated to preventing sudden cardiac death in young individuals, but very importantly is also dedicated to supporting young individuals who have been diagnosed”, adding: “What we have noticed over the years is that there are a number of questions which come up in the myheart group which are not covered comprehensively through the national health system that all those young individuals attend – and a particular question is about exercise.” Joseph and Paula go on to describe their experience of diagnosis and treatment, and how it related to their participation in exercise. Paula was diagnosed with Brugada syndrome in 2011 after the sudden death of her brother, and was fitted with an ICD the following year. After the operation, she was advised not to exercise for a month. She said that there was no support or consistent advice from her consultants on how to get back into exercise afterwards and found it was a real challenge without any guidance on what limits to set herself, or which exercises were safe: “I was worried; I didn’t know what kind of exercise to do, what limits to take it to.” In addition, Paula struggled with a loss of strength and mobility in her shoulder from the implantation surgery, and the time it took her body to become accustomed to the device as it settled. Joseph was diagnosed with the same syndrome and implanted with an ICD after suffering a cardiac arrest running the Hastings Half Marathon in 2008. He found the advice on exercise afterwards “negative”, and was told that he couldn’t ever run or exercise strenuously again. “I was literally told that I wouldn’t be able to do any of that stuff,” he says. Joseph also points out that having suffered a sudden cardiac arrest, he found it very difficult to take in the advice he was offered, however limited: “For me it was a traumatic experience – having a cardiac arrest, that

scares you beyond anything because you came that close to death – so even when people tell you stuff, even then I don’t think I took much of anything in.” Both Joseph and Paula agree that it was speaking to other members of the myheart Network that gave them the confidence to begin to exercise again, and they hope the video of their discussion can be of help to other young people who have been diagnosed; a source of encouragement that it can be possible to exercise within safe limits after the diagnosis of an inherited cardiac condition. “One of the problems,” Dr Papadakis explains, “is that we do deal with a variety of conditions, some of them we know better than others, and that’s why there is a gap in that knowledge, particularly with exercise prescription.” Nonetheless, the myheart Cardiologist highlights several important points for young people with heart conditions to take away from the video. Dr Papadakis emphasises that regular exercise is beneficial to health – in moderation – and stresses the importance of receiving exercise guidance tailored to the individual and the condition. He makes clear that Joseph and Paula’s syndrome is considered relatively benign in relation to exercise and they are therefore at less risk than those who have been diagnosed with more exertion-sensitive conditions. For Paula and Joseph, staying well-hydrated and avoiding a high body temperature while exercising are especially important to prevent an irregular heart rhythm occurring. “I tend to listen to my body more now. If I’ve got a cold, if I’m not well, I won’t train,” Joseph says. “If something doesn’t feel right, I don’t do it.” The film is now available on the myheart website at www. myheart.org.uk/myheart-debate-exercising-with-an-icd, along with a series of other videos in which Dr Papadakis answers many other frequently asked questions on topics as diverse as “The need to repeat an ablation” and “Contact sports and ICDs”.

Issue 68 | September to December 2015

CRY Centre for Cardiac Pathology (CRY CCP) Report Professor Mary Sheppard, Consultant Cardiac Pathologist

Eleni Konstantinou, Laboratory Technician Khari Edwards, Laboratory Technician Sara Santos Vidal, PA to Professor Mary Sheppard

By Sara Santos Vidal, PA to Professor Mary Sheppard: We were glad to receive a visit from Chief Coroner Judge Peter Thornton QC on the morning of Tuesday 12 December, and he asked many penetrating questions about the unit. CRY Consultant Cardiologist Professor Sanjay Sharma was on hand to emphasise the importance of CRY’s family screening programme. The visit highlighted the success of this unit within the coronial system in the UK. Professor Sheppard was a lecturer in the training programme for coroner’s officers in England throughout 2015, in which the service funded by CRY was highlighted. The CRY pathology laboratory now has a fully computerised CRY National SADS Database. We completed new technician appointments in September with the supervision and

From left to right: Eleni Konstantinou, Professor Mary Sheppard, Dr Shama Vadivelou, Khari Edwards, Judge Peter Thornton QC, Brenda Jones, Professor Sanjay Sharma and Dr Maite Tome

training of Eleni Konstantinou. Khari Edwards started in December 2015 and is now under the supervision of Eleni. Both are now familiar with the complex procedures we employ within the laboratory. We had 74 cases from September to December, an increase from 64 during same period in 2014. Overall we are pleased to say that the CCP has been able to support more families than last year. There is also an improvement in turnaround time since 2014. There was a delay in turnaround for reporting in September and October due to Professor Sheppard being on sick leave, which emphasises the necessity of a colleague whom she can train to the high level of expertise required.

www.c-r-y.org.uk

We ran a very successful teaching course in cardiovascular pathology for UK and European pathologists in 2015 with over 60 attending – CRY exhibited at this course. Visitors We have now established the unit as a national training centre for cardiac pathologists and forensic pathologists. • Forensic Pathologist Dr Shama Vadivelou from Kuala Lumpur, Malaysia, undertook a training programme from October to December. Teaching • Visiting professor to South African International Academy of Pathology in August. • Training course for the coroner’s office as lectures in September. • Visiting professor to Turkish Pathological Society in September. Inquests Professor Sheppard attended four inquests throughout the UK from September to December, attending for the full day and speaking to relatives, which is a vital part of her work with CRY.

Research News CRY International Medical Conference 2015 CRY’s 10th annual International Medical Conference was again a great success, building on the event’s reputation for showcasing research and presentations from some of the world’s leading cardiologists in the fields of inherited heart conditions and sports cardiology. The CRY Conference took place on 9 October 2015 at the Cavendish Centre in Marylebone, London, and was fully booked with 170 medical professionals and students registered to attend. The CRY Conference is organised in collaboration with the Section of Sports Cardiology of the European Society of Cardiology (ESC); CRY Consultant Cardiologist Professor Sanjay Sharma is Chair of this section, and myheart Network Cardiologist Dr Michael Papadakis is a nucleus member. Also presenting at the conference was Italian past-Chair Professor Domenico Corrado. Professor Sharma made a point of thanking Professor Corrado for his laudable dedication to the CRY Conference, remarking: “Domenico’s come here every single year for 10 years without fail.” Another ESC nucleus member lending his significant expertise was Professor Mats Börjesson, who travelled from Sweden for his fourth event. CRY Deputy Chief Executive Dr Steve Cox received the longest applause of the day for his overview of what CRY has achieved in 20 years and what he sees becoming possible in years to come. He outlined CRY’s long-standing commitment to tackle young sudden cardiac death from every conceivable angle, summarising 20 years of progress made in awareness, pathology, bereavement support, family screening, patient support, athletic screening and, of course, medical research. Laying out the interplay between research, policy and practice crucial to CRY’s strategy, Dr Cox concluded his presentation with the message: “Central to everything here are the CRY families, because without the sudden death of a young person

A slide from Dr Steve Cox’s presentation

none of this is important.” In a lively question and answer period, Dr Cox added that he hoped the continued growth in awareness and availability of cardiac screening would transform its association with uncovering lethal conditions to a more positive association of enabling treatment. Representing cardiac pathology was CRY’s Professor Mary Sheppard, who demonstrated dozens of examples of cardiomyopathies (heart muscle diseases) at post-mortem and offered her unmatched expertise on what to look out for. Professor Sheppard also described a continued upward trend of referrals to her laboratory for expert opinion at the CRY Centre for Cardiac Pathology (CRY CCP), and explained the results of a 2009 study of the varied causes of sudden cardiac death diagnosed there. Professor Sanjay Sharma gave a presentation on guidelines for differentiating between hypertrophic cardiomyopathy (HCM) and exercise-related cardiac adaption in athletes. This remains a crucial topic of further research for CRY doctors; HCM is believed to be the leading cause of death in young athletes and CRY is at the cutting-edge of reducing the grey area between “athlete’s

Issue 68 | September to December 2015

Research News heart” and cardiomyopathies. Professor Sharma was keen to point out the sensitivity of the ECG, commenting on the paradox that for testing athletes the ECG is often more useful than an MRI: the cheapest test gives you some of the most important information.

Dr Antonis Pantazis from the Royal Brompton and Harefield hospitals; Professor Angeliki Asimaki from Harvard Medical School in Boston, USA; Dr Sara Thorne from University Hospital Birmingham; and former CRY Research Fellow Dr Ahmed Merghani.

Dr Michael Papadakis went on to discuss the development of new “CRYteria” for interpretation of the ECG. He pointed to the progress of ECG guidelines from the ESC in 2005 and 2010, the Seattle criteria in 2012 and then the CRY refined criteria in 2014. CRY’s criteria goes to great lengths to remove false positive results from consideration whilst maintaining sensitivity to disease, focussing on the importance of ethnicity, age, family history of sudden deaths or conditions predisposing to sudden death, and the evaluation of potential indicators of disease appearing in isolation.

For the CRY Conference’s final session, a handful of speakers present difficult case studies and stimulate audience debate by asking diagnostic questions throughout. In 2015, instead of CRY staff, CRY doctors Michael Papadakis and Aneil Malhotra took over the task of distributing microphones to the audience in order to encourage participation and marshal the discussions. Presenters included CRY Fellows Dr Gherardo Finocchiaro, Dr Tracey Keteepe-Arachi and Dr Keerthi Prakash.

Other cardiologists who presented at the CRY Conference this year included Dr Elijah Behr from St George’s Hospital;

Edited excerpts from an interview with Dr Harshil Dhutia, who has been a CRY Research Fellow since 2013, and had the paper “The prevalence and significance of a short QT interval in 18,825 low-risk individuals including athletes” published in the British Journal of Sports Medicine on 23 September 2015. What is short QT syndrome? Short QT syndrome is a condition that can cause a disruption of the heart’s normal rhythm (arrhythmia). In people with this condition, the heart muscle takes less time than usual to recharge between beats. The term “short QT” refers to a specific pattern of heart activity that is detected with an electrocardiogram (ECG), which is used to measure the electrical activity of the heart. Why are there debates about the prevalence and significance of a short QT interval? The definition of a short QT interval (as measured with an ECG) from various learned expert consensus panels varies greatly from <390 to ≤320 milliseconds (ms). Furthermore, the prevalence of a short QT interval – by any criteria definition – in young and apparently healthy individuals is not known. Whether short QT intervals pose a risk of sudden cardiac death in apparently healthy adolescent and young adult

www.c-r-y.org.uk

The CRY Conference once again ended in a very positive mood, and feedback from the attendees was extremely good. For all the presentations from the conference, please visit www.c-r-y.org.uk/conference-videos-2015

populations has not been established; however, sudden cardiac arrest in this cohort, particularly in athletes, is highly scrutinized. What did your study’s results show? The prevalence of a short QT interval varies widely, from 15.8% (<390ms) to 0.1% (≤320ms), depending on which of four current guideline definitions are applied. Gender and ethnicity influence the QT interval. Males are three times more likely to have a short QT interval (≤320ms) than females, and Afro-Caribbean individuals are five times more likely to have a short QT interval than Caucasians. Even when QT intervals are ≤320ms, they are associated with an excellent medium-term prognosis. This questions the value of a short QT interval as a marker of short QT syndrome in adolescents and young adults in the absence of symptoms or of a family history of sudden arrhythmic death syndrome. Applying the 2013 Seattle criteria for ECG interpretation results in a 50-fold lower rate (8.62% vs 0.17%) of athletes with suspected short QT syndrome compared to the 2010 European Society of Cardiology (ESC) recommendations. What are the implications of these results? A short QT interval in isolation has poor medium-term diagnostic and prognostic value, and should not be solely relied on to diagnose short QT syndrome in young individuals. The ESC definition for a short QT interval in athletes (<380ms) is associated with a high false positive rate. The Seattle criteria definition (≤320ms) is more pragmatic for ECG interpretation guidelines in athletes.

Morrisons Great North Run 2015 Congratulations and a huge thank you to the 56 CRY runners who took part in the Morrisons Great North Run on Sunday 13 September 2015. Once again the atmosphere was buzzing at “the greatest half marathon in the world”, and the men’s winner in 2015 – for the second year in a row – was Olympic gold-medallist Mo Farah CBE. The women’s winner was Kenyan record-holder Mary Keitany, again for the second consecutive year. Whilst this was the first time since 2009 we were unable to secure a marquee space and meet the CRY runners after the race, we were overjoyed to hear so many positive stories from the supporters there on the day. All of our runners can be extremely proud of their huge efforts in running the half marathon. Their time and commitment to training and fundraising is truly appreciated. We hope to see some of our 2015 runners taking part again in 2016, and as always we hope for lots of new faces as well!

Issue 68 | September to December 2015

Morrisons Great North Run 2015

CRY runners were: Rosalyn Barber

Andy Grey

Courtney Victoria Nicholas

Arianna Barclay

Jonathan Hardman

Kevin Nicholas

Gary Baxendale

Barry Holcombe

Lesley Nicholas

(in memory of Robert Daniel Smith)

Alex Pawlitta

Tracey Stimpson

(in memory of Alex Reid) (in memory of Aubrey Smith) (in memory of Neil Darby)

Stuart Blanchard

(in memory of Darren Uscroft)

Lyndsay Elizabeth Brickles (in memory of James Campbell)

(in memory of Kasia Ber) (in memory of Luke Dickinson) (in memory of Andrew Holcombe)

Stewart Hudson

(in memory of Joe Pearce Willis)

Jane Kinghorn

Gabby Broadhurst

(in memory of Tom Clabburn and Claire Prosser)

Shona Cannings

Xena Marshall

(in memory of David Green) (in memory of Robert Drummond)

(in memory of Harry Faulkner)

Stephanie Marshall

Robert Carr

(in memory of Tom Clabburn and Claire Prosser)

Alexandra Chary

Adam May

(in memory of Lee Turner)

Julie Clarkson

(in memory Jenni and David Paul)

Anne Clouston Mark Cooper Sara Coutts

(in memory of Stuart Coutts)

Stephen Deacon

(in memory of Michael Land and Jonathan Leigh)

Aoife Dervan Stephanie Marie Egan

(in memory of Allyn McCluskie)

Daniel Gibbons

(in memory of Mark Pover)

(in memory of Alex Reid)

Alan Middlemast

(in memory of Keith Middlemast)

Linda Millership

(in memory of Madeline Siddall)

Andy Moody

(in memory Robert Heyes and Alan Bretherick)

Simon Paul Moralee

(in memory of Robert Daniel Smith)

Tom Neville

(in memory of James Nicholas) (in memory of James Nicholas) (in memory of James Nicholas) (in memory of Madeline Siddall)

Kate Pawlitta

(in memory of Madeline Siddall)

Lewis Price Lynne Rathbone

(in memory of Mike Rathbone)

Graham Reed

(in memory of Jenni and David Paul)

Kathie Rees

(in memory of Madeline Siddall)

Katie Reynolds

(in memory of Matt Cragg)

Mark Rogers

(in memory of Pardeep Nagra)

Ian Salmon

(in memory of Matthew Seymour)

Emma Sammon Jan Sawyer

(in memory of John Chapelhow)

Linda Smith

(in memory of Robert Daniel Smith)

Elaine Spence

(in memory of Alex Reid)

Gary Thompson

(in memory of David James Ward)

Jordan Thompson

(in memory of Robert Daniel Smith)

Russ Thompson

(in memory of Katrina Christopher and Cheryl Christopher-Webber)

Holly Waddell

(in memory of Chloe Waddell)

Robert Wells

(in memory of Darren Uscroft)

Charlotte West

(in memory of James Campbell)

Ronnie Wiffin

(in memory of Christopher Britton)

Daniel Wilson

(in memory of Fiona Russell)

Megan Wynne

(in memory of Emily Rose Dunn)

(in memory of Joe Pearce Willis)

The next Morrisons Great North Run will take place on Sunday 11 September 2016. Please contact events@c-r-y.org.uk for further information.

www.c-r-y.org.uk

CRY Durham Riverside Walk 2015 An amazing 203 supporters took part in the sixth CRY Durham Riverside Walk on Saturday 3 October 2015.

Our thanks to everyone who could attend and make the day so special. It was a poignant sight to see everyone coming together to walk in memory of a young person or support someone close to them. As in previous years, it gave families the opportunity to meet with friends and CRY staff as well as take part in a stroll through the beautiful Durham countryside. The day started off chilly and misty and remained so for most of the day, so the walkers appreciated the tea and bacon sandwiches that were laid on by Durham Amateur Rowing Club before the walk. Due to the diligence of our supporters, the event enjoyed a great deal of local press coverage – including articles in the Durham Times, Northern Echo and Teesside Evening Gazette and also an interview with Steve Percival at Bishop FM promoting the walk and offering free “Don’t CRY” CDs to those who registered via the radio station. Rebecca Zouvani, CRY Fundraising Manager, welcomed all the assembled walkers to the event before introducing Jeff Morland, who gave a moving speech about why he supports CRY. He also read out the names of the young people in whose memory families and friends were taking part, before officially starting the walk. Following an extensive landslide in 2013 the route was reduced to just over 5km, and as the repairs have not yet been completed we continued with this route for 2015. After all the group photos had been taken, the walkers

(with plenty of buggies, toddlers and dogs amongst them) set off on the walk. Following the River Wear, walkers took in the magnificent view of Durham Cathedral through the cloud and mist. Each walker was welcomed back to the rowing club with a certificate and a feedback form. The rowing club once again opened the bar and provided delicious panini and cakes for the walkers, volunteers and CRY staff on their return. This year, thanks to the efforts of Steve Percival, we also had a charity stand in Durham Market Place to help raise awareness, which was manned by CRY volunteers Kenny and Maralyn Bowen. They handed out refreshments and encouraged people to take part in a free prize draw. Soup and sandwiches were provided courtesy of Andy Hughes, the manager of The John Duck pub. The day ended with the prize draw at the pub and the winners of the three prizes were Katherine Ellison, Sam Cadman and Donna Harle. We would love to see everyone again next year, and hope to see even more new faces. We are planning to hold the event on Saturday 1 October 2016. If you would like to know when a date has been confirmed for 2016 please email events@c-r-y.org.uk. To see the full gallery of images from 2015’s Durham Walk please visit our Flickr gallery at www.flickr.com/photos/ cardiacriskintheyoung

Issue 68 | September to December 2015

CRY Durham Riverside Walk 2015

This event is only possible because of the help of our dedicated volunteers. Thank you. Kenny and Maralyn Bowen; Jeff Morland; Wendy Moss; Steve Percival; Janette Pollard; Margaret of the Ber family; and Mark, Graham, John, Michelle, Debbie, and Joan and family from the rowing club. Special thanks, once again, must go to Jeff Morland and Steve Percival for helping to organise the event and making it all happen each year. We are also grateful to various organisations and businesses for their generous support, including The John Duck pub and Durham Markets Company.

www.c-r-y.org.uk

CRY Great Cake Bake 2015 The fourth CRY Great Cake Bake took place on Friday 27 November 2015, as part of Raising Awareness Week. Money is still coming in but we are delighted to say that we have raised £22,787.90 so far! For the second year, CRY held competitions for the top fundraiser and best-looking cakes after top chef Ariana Bundy generously donated five more copies of her cookbook Pomegranates and Roses.

• Mary Abraham raised £50 in memory of her son, Philip. • Sue Allseybrook raised £113.50 in memory of her son, Steven. • Avril Bandy raised £50 in memory of her son, Keith. • Frances Barnes raised £300 in memory of her son, Nick.

Runners-up were Graham and Jenny Loncaster who raised £1,700 from their cake sale held in memory of their son, Jamie. Best cake design We were very impressed with the cake designs that we saw in the write-ups from 2015. It was a hard decision for the panel of CRY employees debating their favourites but they chose the roses cupcake bouquet from the cake bake held by Theresa Owen – it looks too good to eat!

We have received some great stories about people’s events and seen some lovely photos of all the hard work that went into making them a success. For all the photos and full write-ups from the Great Cake Bake 2015 please visit www.c-r-y.org.uk/cry-great-cake-bake-2015

• Anna Aristodemou raised £188.51 selling cakes to customers at A Cut Above hair salon.

Top fundraiser Adrian and Amanda Topp who raised £1,930.27 from their cake sale that was held in memory of their niece, Bethany Mycroft.

Runners-up were the snowflake-themed giant cupcake from the event held by June Thomas and the CRY-branded carrot cake from the event held by Natalie Sharp.

We would like to thank everybody who took part in the Great Cake Bake for helping to make the event such a success. Over 100 people signed up for Great Cake Bake information packs and we are really pleased that the event has grown with continued support since its introduction in 2012.

• Rachel Barton-Hagger raised £1,400 in memory of Isabelle Tudisca. • Nicole Bernard raised £130 in memory of Daniel Newman. • Judy Brookes raised £1,000 in memory of her son, Greg. • Patricia Connor raised £395 in memory of her son, Stephen. • Kate Bome raised £1,231.38 in memory of her daughter, Charlotte Adams: “The first anniversary of my daughter Charlotte’s death fell within CRY Awareness Week 2015. She loved making cakes so I decided that it was fitting to join the Great Cake Bake. I’d like to say thank you to Great Totham Primary School who have not only supported me through this terrible ordeal but helped by making

Issue 68 | September to December 2015

CRY Great Cake Bake 2015 cakes and then amazingly spent £831 buying them back! Thanks also to: Becca, Charlotte’s sister, and the staff on the science floor at Boswells School, Chelmsford, for £58.35; Charlotte’s friends, Dani and Rainbows Pre School would like to thank the parents for their generosity raising £90.20; Suzanne would like to thank Mrs Mason and staff at Maldon Court Preparatory School, raising £40.65; Jade’s mum, Jackie and the Writtle Wick Family Centre Team raising £60.60; Bryan and the staff at Fyfe Wilson raising £22.00; the staff, especially the admin team, at Charlotte’s work, Birkett Long, raising £128.58. Thank you to everyone who baked, ate and donated.” • Daisy Cousins held a cake bake with the help of her grandma, Jackie, and raised £93.50 in memory of Jackie’s son, Bruce Cousins. • Karen Cowie raised £1,235.87 in memory of her cousin, Gary Stewart.

• Linda Goodwin raised £116 in memory of her son, Ashley. • Tom and Judy Green raised £874 in memory of their son, Adam. • Laura Harper raised £108 in memory of Sian Roger. • Viv Hawkes raised £70. • Alison Howells raised £301.18 in memory of her daughter, Ceri Palmer née Howells.

• The CRY office raised £87.13. • Sue Fisher and Mountbatten School raised £260 in memory of her son, Philip Standing. “CRY cake bakes were held in three venues; South Cheshire College (my workplace), The Lighthouse Centre (Church) in Crewe • Angela Hancock raised £641.15 in and Gymophobics ladies’ memory of her husband, Mark: gym in Nantwich. All of these were really well “£641.15 was raised by Anne Barber and supported and the grand friends who made and sold Christmas crafts total of £301.18 was at the Biddulph raised overall. There was Christmas lights a wide range of delicious switch on. The cakes including chocolate event also Guinness, a gluten-free incorporated the lemon and almond cake, CRY Great Cake CRY cupcakes, lemon Bake with boxes drizzle, chocolate and of cupcakes being ginger, tiffin and the most sold on the stall.” amazing Victoria sponge.”

• Janice Tuite raised £390 in memory of Ceri Palmer née Howells. “The Income Office at the University of Kent raised £390 in the Great Cake Bake. We also included a raffle to raise more funding. This year we would like to dedicate the funds we have raised to the memory of our student, Ceri Palmer née Howells, who died from SADS in March 2014.” • Graham and Anne Hunter raised £586 in memory of their daughter, Claire Reed: “The CRY Great Cake Bake, an annual country-wide event, was held again in Botley Market Hall in memory of our daughter Claire Reed. Very many lovely cakes were purchased and consumed, served up with tea or coffee. There was a tombola and a raffle for a bottle of House of Commons Hampshire white wine signed by Prime Minister David Cameron. A great deal of residents turned up to support us, also Eastleigh MP Mims Davies.

• Mandy Ghaleb raised £100 in memory of Robert Allan.

www.c-r-y.org.uk

“The event was made even more enjoyable by the singing by choir ‘Singsational Voices’ (Anne is a member). Many volunteers gave up their time to not just bake lovely cakes but to help serve the cakes, teas and coffees.”

CRY Great Cake Bake 2015 • Laura Lancastle raised £215 in memory of her husband, Andrew:

• Graham Loncaster raised over £1,700 in memory of his son, Jamie.

“We raised £215 for CRY at our WSP | Parsons Brinckerhoff CRY bakeday, in memory of my husband Andrew Lancastle. A great morning was had by all with far too much cake!”

• Natasha Mohammed raised £660.41 in memory of Bernadette Lutman. • National Citizen Service, North Staffordshire, raised £293.77.

• Lisa Robotham raised £73.08 in memory of Max Schiller. • Jeanette Sanderson raised £224. • Carly Scott’s students raised £71.85.

• Caz Noble raised £340 in memory of Pete McAvoy. • Pete and Sue Robinson raised £175:

• Koula Louki raised £1,184.

“In the days leading up we spent plenty of time baking to ensure we had goodies to suit all tastes and, hopefully, raise lots of money for CRY. As I work from home it was decided husband Pete’s office would be the lucky recipients of all the cakes. The office managers were very helpful.

• Shanks Waste Management raised £600.88 at their workplace following a nomination by Ann Davis. • Natalie Sharp raised £700 in memory of Cheryl ChristopherWebber. • Sarah Shaw raised £495.

• Claire McPherson raised £213.50 in memory of her cousin, Ben Whitwham.

“Pete was kept very busy talking to people about CRY as they came to buy. Many hadn’t heard of CRY and • Theresa Owen were interested raised £235.68: to learn more, although there “I am so incredibly was a couple proud of and grateful whose friends to all my work friends who had sadly lost who rallied around for family members. me with our CRY Great People were very Cake Bake on Friday! generous and Their awesome input, seemed to enjoy baking and eating the cakes (not so treats (it’s a hard life) much the healthy and this beautiful cupcake flower helped raise a ones) – very massive £235.68, €1 and 1 French franc.” satisfying!”

• Lesley Sheridan raised £200 in memory of her son, Paul.

• Emma Dallimore raised £195 in memory of her brother, Paul Sheridan: “I held a great cake bake for CRY in memory of my brother last Sunday. About 10 people came and then

Issue 68 | September to December 2015

CRY Great Cake Bake 2015 some friends who couldn’t make it kindly donated online. I raised £195 which is double what I thought I’d raise.” • Christine Slater raised £265 in memory of her son, Tim Jones. • Linda Stiller raised £626 in memory of her son, David. • Nicola Storr raised £470

in memory of her brother, Jonathan Leigh.

• Hilary Wagstaff raised £1,330 in memory of Ethan Jones.

• Lauren Swan raised £419.63 in memory of her partner, Daniel Newman. • JS Thomas raised £250. • Marina Tomsett raised £165 in memory of Andrew Philip Carter.

• Jenny Thomas raised £851.25 in memory of her son, Nicholas.

• Helen Walcott and Ellen Edwards, CRN: West Midlands Birmingham Research Park, raised £318.94:

“We held a cake bake on Saturday 28 November at our house through the day in memory of Nicholas Thomas. We had the most fantastic response from friends, family and neighbours and raised £851.25.”

• Adrian and Amanda Topp raised £1,930.27 in memory of their niece, Bethany Mycroft: “Our Great Cake Bake was held on Friday 27 November 2015 in memory of Bethany Mycroft who sadly passed away on the 22 March 2015. We organised a full-day cake and coffee charity event from 9am until 6pm to ensure that Bethany’s friends and family that wanted to attend were able to do so. Social media was used to promote our event with really positive feedback. The weekend before our cake and coffee day was spent delivering 1,000 leaflets within the village that Bethany lived. “As a family we were absolutely overwhelmed at the amount of cakes that were donated and the support that we received. Additional fundraising activities were also organised which included a raffle, guess the teddy’s name, ‘chocolate explosion’ raffle, guess the number of sweets and guess the weight of a CRY-themed cake. We also managed to organise three smaller cake bake events at my work place, my daughter’s school and within a friend’s hairdressing salon.”

www.c-r-y.org.uk

“£122 of this total was raised by raffling a homemade Christmas cake from Nanny Peg (Karen Hampshire’s mum). This was won by Lauren Thakrar from the CRN:WM South Office. Thank you to everyone for your generosity and support for this great charity. Thanks also to the BRP and CRN:WM for allowing us to have this event… see you next year!” • Wedlake Bell raised £314.65 as part of their 2015 support.

• Madeline Wood raised £95.50 in memory of Jordan Burndred: “We have successfully managed to receive £95.50 throughout the day. We hope this will be of much help. We have enjoyed raising money for your charity and will be doing something else in the near future. Thank you for all of the resources and your support, from the student nurses at Keele University.”

CRY Parliamentary Reception 2015 The CRY Parliamentary Reception on Wednesday 25 November 2015 was an event attended by CRY Representatives, Bereavement Supporters, bereaved families, myheart members, the largest ever number of CRY Research Fellows and over 40 MPs, who all gathered together at the House of Commons to commemorate 20 years of CRY. As in previous years, MC for the evening was Hugh Mulcahey, bereaved father and CRY Chairman who welcomed the first speaker, Tracey Crouch MP, Minister for Sport. Tracey Crouch opened the speeches by speaking of the high-profile cases that have struck sport in recent years, including footballer Junior Dian in her home county of Kent. She spoke of the need to ensure that screening is rolled out from the elite, professional level to all those involved in grassroots sport. Tracey was then surprised (and visibly moved) to be presented with this year’s painting by wonderful CRY supporter and bereaved father John Bennett – who annually paints a watercolour of a landmark local to our chosen MP. CRY Founder Alison Cox MBE

CRY speakers from left to right: Consultant Cardiologist Professor Sanjay Sharma, Chairman Hugh Mulcahey, Founder and CEO Alison Cox MBE, Patron Baroness Ilora Finlay and Deputy CEO Dr Steve Cox

explained to the audience that John had started painting to help him come to terms with the sudden cardiac death of his daughter, Laura. Dr Steven Cox was introduced by Hugh as CRY’s next Chief Executive to loud applause. He followed on from Tracey by outlining CRY’s progress laying the groundwork for a national strategy for the prevention of young sudden cardiac death. Referring to the National Screening Committee’s 2015 decision against cardiac screening, he remarked: “I’m not aware of any area in policy or practice where 600 young sudden deaths annually would be so easily dismissed, but that is what has happened, and that’s why our next campaign is so important.” He made clear that underpinning the launch of CRY’s www.yscd. org.uk campaign – an online database that will support the true scale of young sudden cardiac deaths in the UK – is an opportunity to show the massive impact cardiac conditions have on society. Professor Sanjay Sharma then gave his usual, brilliant talk on the proven efficacy of CRY screenings and how screening should be being used proactively to safeguard the 80% of young people with a hidden heart condition who die without exhibiting any warning signs or symptoms. Professor Sharma spoke warmly of Alison’s personal encouragement to him as he rose to become one of the most respected cardiologists in the world whilst working with CRY, saying: “Her belief in me has made me believe that everything we aspired to, and we hoped for, and we have surpassed in our quest in preventing sudden cardiac death is now a true reality and it is going to happen. We are achieving our goals, and we are striving for the highest level of success.” Having just stepped off the train from a six-hour round trip to Durham to watch his daughter playing in a university

Issue 68 | September to December 2015

CRY Parliamentary Reception 2015 hockey match, CRY Patron and sports broadcaster John Inverdale took to the podium to deliver a heartfelt account of his first encounter with young sudden death – in 1993, one of his close friends, Howard English, collapsed during a game of rugby from an undiagnosed heart condition. Shockingly, Howard’s death was followed by that of his 15-year-old son, Sebastian, more than 10 years later due to the same condition. John’s connection with CRY didn’t end there; his daughter’s close friend, 16-year-old Emma Broad, selected to play hockey for Great Britain, died suddenly in 2011.

CRY doctors with Screening Programme Manager Azra Loncarevic-Srmic (left)

Bereavement Supporters and authors of A Mother’s Grief

Baroness Ilora Finlay, another of CRY’s Patrons and one of the best known and most active members of the House of Lords, spoke eloquently and passionately, highlighting that the full cost of a young life was still not being properly addressed. She reiterated what she had told the audience at the CRY Parliamentary Reception last year; that it was only when people fully understood this cost did she think that the matter would be given the priority it deserved. As well as Patron speakers Ilora and John, the event was also supported by CRY Patrons Simon Halliday, Andy Scott and Lee Mears, whose company was very much enjoyed by the many guests. It was a pleasure to see MP for Eastleigh Mims Davies, who has done so much for CRY over the past 12 months – from hosting a Commons adjournment debate to running the Great South Run to help raise funds in memory

myheart members with Patron John Inverdale

of Claire Reed. And, as ever, Kevan Jones MP and Sir Roger Gale MP – two of CRY’s most loyal Parliamentary supporters – joined us on the night. CRY Founder Alison Cox MBE concluded the speeches by promoting the latest of CRY’s Grief booklets – A Mother’s Grief and Christmas following a young sudden cardiac death, as well as reassuring guests that whilst she would be vacating the position of Chief Executive for CRY’s Director of Screening and Research, Dr Steve Cox, she would not be leaving CRY: “I’m not stepping out, and I‘m not stepping down, I’m just stepping back a bit.” Alison reserved special praise for Kevan Jones MP and Baroness Ilora Finlay for their political support during the Cardiac Risk in the Young (Screening) Bill, 8 and 12 a week postcard campaigns, and battle for the appointment of a chief coroner; and thanked CRY’s Trustees for their “wisdom and kindness” over the years.

CRY Consultant Cardiologist Professor Sanjay Sharma (left), Patrons Andy Scott, Simon Halliday, Lee Mears, John Inverdale and Baroness Ilora Finlay, and CRY Founder Alison Cox MBE (centre)

www.c-r-y.org.uk

To listen to the speeches please visit www.c-r-y.org.uk/cry-parliamentaryreception-2015

Sure Run to the Beat 10K 2015 Congratulations and a huge thank you to the 9 CRY runners who took part in the Sure Run to the Beat 10K on Sunday 13 September 2015. The atmosphere was lively with hundreds of runners and supporters, the 10K eventâ&#x20AC;&#x2122;s signature pop soundtrack and the dramatic backdrop of Wembley Stadium. There were four immersive music zones to motivate everyone to get up all those hills and a dance party with celebrity DJs Danny Howard, Marvin Humes and Jameela Jamil to kick off postrace celebrations. CRY runners who visited our meeting point after the race were given a warm welcome, had their photo taken and were given a goody bag by CRY staff Rosie Peploe and Lesley Dallow. Phill Barnett was the first CRY runner to return to our marquee having completed the race in a speedy 00:48:03! It was wonderful that everyone came back to see the CRY team so we could say thank you in person for the support â&#x20AC;&#x201C; we were so pleased to meet you all, including your friends and family.

CRY runners were: Phill Barnett

Imogen Levy

James Boag

(running in memory of Barry Nivett)

Jenny Boag

(running in memory of Barry Nivett)

Wendy Harrington

(running in memory of Barry Nivett)

(running in memory of Sara Pilkington)

Jayne Mortimer

(running in memory of Luke Morton)

James Sharp Rebecca Sharp Jessica Stevens

(running in memory of Mathew Blease)

The Sure Run to the Beat 10K will not take place in 2016. Please contact events@c-r-y.org.uk if you would like to register your interest in the next event.

Issue 68 | September to December 2015

Our Fundraisers Regular Donors CRY received regular donations from the following supporters in 2015:

Rob Simpson in memory of Ben Simpson • Will Simpson in memory of S Simpson • Philip Sparrow in memory of Kieran Sparrow • Andrew Spurling in memory of Rupert

David Allen in memory of Jane Allen • Lorna Anderson

Spurling • Lucy Stevens in memory of Andrew Stevens

• Alexandra Bach • Roy Bagguley in memory of John

• Mr and Mrs C Stewart in memory of Natalie Stewart

Marshall • Leslie Baker • Amanda Barker in memory of

• H and S Stimpson • Judie Street in memory of Ewan

Nigel Edgar • Carl Barnes • Ann Bath • Christine Booth

James Bellamy • Mike Styles in memory of D Styles • P

• Anna Brewer • Jacqueline Brinck-Johnsen in memory

Tayler-Jones in memory of John Hodgetts • Sally Thorn in

of Alexander B Johnsen • B Bunker in memory of Neil

memory of Ben Thorn • Brian Weeks • R Wheeler • JD

Desai • Karen Byrne in memory of Ken Byrne • Jonathan

Williamson • Kevin Wilson

Cook • C Currie • Joyce Dale in memory of Andrew Dale

• Rachael Davies • Mark Davies in memory of S English • J Evans • Andrew Fallon • S Fisher • Wendy Fletcher in memory of Jon Fletcher • Gomez • K Hemmings in memory of Nathan Butler • Margaret Howroyd in memory of Claire Beer • CA Hustwit in memory of Neil C Hustwit • Alastair Jackson • David James in memory of Josh Shotton • PN Jarvis • Jonathan Krish in memory of Judith Krish • Lines • Vanessa MacLeod in memory of Alex Roberts • Edward Magee • Donna Mayall in memory of Adam Middleton • Lynn McBrearty in memory of Lauren Holly • Carmel Merrick in memory of Josh Merrick • Sandra Merrick in memory of Josh Merrick • A Miller • Resham Nagra in memory of Pardeep Nagra • William Perring • Hayley Pizzey • Lisa Power in memory of James Devlin • SA Rintoul in memory of Katy Stirland

• M Roberts • Carlton Rose in memory of Neil Desai

Someone Special CRY received the following funds from Virgin Money Giving Someone Special pages in 2015: • Sandy Bennett’s fundraising page in memory of Mick Bennett raised £600. • Lisa Bramwell’s fundraising page in memory of Dave Bramwell raised £2,945. • Andrew Sampson’s fundraising page in memory of Alex Camilleri raised £1,468. • Patricia Connor’s fundraising page in memory of Stephen Connor raised £140. • Sue Dewhirst’s fundraising page in memory of Matthew Dewhirst raised £50,923.33. • Hollie Dixon’s fundraising page in memory of Aaron James Dixon raised £3,918.25. • Francesca Embling’s fundraising page in memory of Rory Embling raised £353. • Mark Anderson’s fundraising page in memory of Andy Forbes raised £825.

• Julie Rust in memory of Liam Hipkin • Mr and Mrs C

• Nicola Hindmarch’s fundraising page in memory of Joe Hindmarch raised £275.

Simpson in memory of Paul Simpson • John Simpson •

• David Hughes’s fundraising pages in memory of Daniel

www.c-r-y.org.uk

Our Fundraisers Hughes raised £12,288.39. • Sharon Surman’s fundraising page in memory of Daniel Hughes raised £3,139.40. • Tracey Jessop-Thompson’s and Sophie Stone’s fundraising pages in memory of Lucy Adena Jessop raised £3,193.15.

• Oliver King’s fundraising page in memory of Miles Reid raised £1,130. • Kenny Seymour’s fundraising page in memory of Matthew Seymour raised £23,517.35. • Linda Smith’s fundraising page in memory of Robert Daniel Smith raised £11,949.29.

• Carl Johnson’s fundraising page in memory of Lisa Johnson raised £130.

• Mary Stiller’s fundraising page in memory of David Stiller raised £794.

• James Tregaskis’s fundraising page in memory of Andy Matthews raised £600.

• Jenny Thomas’s fundraising page in memory of Nicholas Thomas raised £495.

• Kirsty MacMillan’s fundraising page in memory of John Millar raised £230.

• Cathryn Thurlow’s fundraising pages in memory of Scott and Michael Thurlow raised £790.

• Keira Kilgarriff’s fundraising page in memory of Andrew Patterson raised £3,591.

• Melanie Webster’s fundraising page in memory of Lily Webster raised £145.

• Loretta Pettifer’s fundraising page in memory of James Pettifer raised £20,132.50.

• Emma Steers’s fundraising page in memory of David Wild raised £1,795.

• Simon Preston’s fundraising page in memory of Bethany-Shannon Preston raised £1,799.20.

• Liz Williams’s fundraising page in memory of Amy Williams raised £1,500.

• Sean Reading’s fundraising page in memory of Ed Reading raised £6,373.77.

• Rebecca Wingett’s fundraising page in memory of Rianna Wingett raised £575.

Entries appear in the following section according to when CRY sends written receipt for funds raised. The following fundraising was receipted from September to December 2015. In Memory of

Holly and Richard

Lara Ollerenshaw walked the West Highland Way and raised £140.

In Memory of

Jake and David

Helen Hannay took part in the Great Manchester Run and raised £450.

In Memory of

Charlotte Adams

Kate Bome sent in £1,665 raised at a race night.

In Memory of

Stephen Adams

Laura Adams raised £300 through taking part in the Bupa Great North Run 2014.

In Memory of

Stephen Brister sent in a donation of £100.

Lisa Ashwood sent in £3,464 raised through a charity football match and collection tins.

Pat

Leigh Aldridge

Issue 68 | September to December 2015

Our Fundraisers Corrections and Apologies Apologies to the family of Alex Brown, as fundraising from the CRY Heart of London Bridges Walk 2015 was recorded incorrectly.

page 39

Apologies to the family of Jack Phillips, as Royal Wootton Bassett Academy’s fundraising was recorded incorrectly. page 82 Apologies to the family of Sian Roger, as fundraising from the CRY Heart of London Bridges Walk 2015 was recorded incorrectly.

In Memory of

Robert Allan

James Brewins raised £4,280 through his Alesco-vember fundraising page.

In Memory of

Steven Allseybrook

Sue Allseybrook sent in a total of £1,240.38, including £122.42 raised from collection boxes.

In Memory of

Marcus Armstrong

Tony Armstrong sent in £500 from Harwich & Dovercourt Rugby Club.

In Memory of

Stuart Attridge

page 87

In Memory of

Alan Bain

• Alexandra Higgins took part in the Hoy Half Marathon and raised £417.93. • Kathleen Bain sent in a total of £4,180, including £1,460 raised through a postcard art exhibition and sale organised with Nancy Gibson. “The exhibition/ sale was organised by Nancy Gibson and myself with help from Sandra Higgins and Ingrid Budge. Thanks go to all who donated artwork and those who came to the event, helping raise a grand total of £1,460!” Kathleen Bain.

Daniel Hill-Smith took part in the Brisbane Marathon and raised £100.

In Memory of

Simon Askew

Laura Barlow and Emma Gueran took part in the CRY Heart of London Bridges Walk 2015 and sent in additional funds, making a total raised of £2,158.

www.c-r-y.org.uk

Our Fundraisers In Memory of

Bob Baldwin

Christine Bloomfield sent in £170 raised through the Bob Baldwin Memorial Cup darts tournament and a raffle.

In Memory of

Esme Balp

Katy Whyte took part in the Endurance Life Event and raised £110.

In Memory of

Johnny Barker

Ben Pocock took part in Ben and George’s Coast Walk to Wales Ride and raised £1,059.

event of the 6 day concept. Lewis was a keen and budding cyclist who was following in his parents’ footsteps on the trail of becoming a regular Great Britain squad member. “All the racing was conducted in European style to a background of music provided by the top European 6 day DJ Pete Traynor. There was also entertainment within the meeting for all spectators to enjoy. All the riders and officials gave their time and effort free of charge to help the chosen charities.

In Memory of

Cecilia Barriga

• Richard York sent in a donation of £100. • Mohsin Harhara sent in £450 raised through taking part in the Amsterdam Marathon.

In Memory of

Lewis Barry

“Although it has taken an age (nearly 18 months!) to collect all the monies and sort out payments we have finally done this and I feel the amount has been worth all the effort. It is five years since Lewis died yet we miss him dreadfully every day.”

Mark and Carol Barry sent in £10,112 raised through Spadgers 6 Day Night: “The Spadgers 6 Day Night is a one-night track cycling event based around the concept of the European winter 6 day series, incorporating endurance events for elite male and female riders. The event also incorporated sprint events for the shorter-distance specialists. “The event is a celebration of the life of Lewis (Spadger) Barry, whose favorite event was the Madison, the main feature

In Memory of

Daniel Bartle

David Thomas sent in £835.60 raised through a concert.

Issue 68 | September to December 2015

Our Fundraisers In Memory of

Alex Bates

Andy Taylor at Atkins, Epsom, sent in donation of £200.

In Memory of

Gideon Baws

Tony Baws sent in £500 representing royalties from his book Fishing with Harry.

In Memory of

Matthew Beadle

• Mark Needham, Dan Connolly and Steven Northwood took part in the Woburn Abbey Triathlon and raised £1,135. • Ellen Costello at Connexions Cuisine sent in £1,600 raised from fundraising efforts relating to their 25th birthday celebrations.

In Memory of

Craig Beck

sandbags. The mud was cold and thick and mixed with horse poo, you had to hold your breath and close your eyes as you slid down the mud slides to the pool of mud at the end. It sounds horrific – and to be honest it was – but the sense of achievement when we both completed it was overwhelming and the fact that we actually finished mid-field was an amazing feat. To top it off we managed to make money for CRY. Next challenge is now booked; a colour run with obstacles. There’s no stopping me now.”

In Memory of

Gareth Beckett and Graham McFayden

Sally Walker sent in £2,850 raised through Mac’s Tournament. “Welwyn Tennis Club (WTC) celebrated its feelgood event of the year on Sunday 4 October in staging its tenth ‘Mac’s Tournament’, 29 doubles pairs (including guests from neighbouring clubs) filled the nine WTC courts all day in warm autumn sunshine in memory of Graham McFayden, a much missed stalwart of Welwyn tennis. This year’s chosen charity was CRY, who supported the event superbly with balloons, a raffle prize from Pixie Lott and a supporting speaker. This year’s charity total was a record figure by a long chalk.

Sarah Dennis took part in Sarah’s and Natasha’s Back 2 The Trenches event and raised £260.39. “I heard of CRY though my friend Paula who had sadly lost her brother Craig to a sudden cardiac death, and from that I quickly became aware of CRY though her. I wanted to do something to help so I decided with the help of my friend Natasha to do a mud run, doesn’t sound like much of a challenge but I suffer from bad asthma and struggled to walk long distances so I found myself having to train hard. Added to this I have a strange fear of worms. “On the day of the event I wasn’t too sure what to expect other than getting muddy, and I wasn’t far wrong, although I wasn’t expecting a swim across a lake and running up hills with

www.c-r-y.org.uk

“Gemma with the anniversary cake with CRY logo”

“A delicious lunch, prepared by Joan Pickford and her willing crew of helpers, was included as part of the entrance fee; so good was the cuisine that some players were moving noticeably slower in afternoon matches! They slowed even more after devouring the anniversary cake washed down in a moving toast to absent friends. But nothing could impede the progress of Celeste Reeve and Ian Davidson (twice a previous losing finalist), who carried the day on the court with their guile and experience. Nick Aves excelled as ever as tennis organiser for the day. The

Our Fundraisers In Memory of

Steven Bicker

• Glen, Jackie and David Bicker sent in £340 raised through an annual cricket match and £20 raised at the Sutton Valence School shop, making a total raised of £360. • The Deloitte Foundation sent in a matched giving donation of £250 in respect of David Bicker taking part in the Cambridge Half Marathon. “From left to right: Ian Davidson, Celeste Reeve (champions) and Sue McFayden (organiser)”

consolation plate was lifted by Catherine Parmer and Alfonso Martinez. “One of the most rewarding and fun aspects of the tournament is that all players are involved in the competition right up until the quarter finals. Everybody gets a chance to play all-day tennis. The handicapping scoring system adds greatly to the fun and excitement of each game and rubber. WTC Chairman Ian Wearing summed up this very special Welwyn tennis day as ‘the tournament of the year we all look forward to the most as it’s an event full of generosity and warmest memories. WTC is especially delighted to have pushed the boat out this tenth year, by adding an Auction of Promises to the festivities. We upped our game fourfold from last year by raising a magnificent £2,850 for CRY.’ “Sue McFayden, who has organised all the 10 events, expressed heartfelt thanks to all who contributed once again so much to the success of the day, especially to the Walker family, who not only proposed CRY as the charity in memory of Gareth Beckett but worked tirelessly to make the tenth Mac’s Tourmament a very rewarding and happy occasion.” Terrie Mackie.

In Memory of

Sarah Bennett

Carole Bennett sent in £1,745 raised through a BBQ, entertainment, raffle prizes and an auction of football shirts.

In Memory of

Shaun Biggs

Peter Biggs sent in a donation of £355.

In Memory of

Maxwell Biles

North Dorset RFC sent in a total of £1,460 raised through a summer sevens tournament.

In Memory of

Ben Birch

• Rob Mullings raised £728.24 through taking part in a Tough Mudder event. • Andrew Hadley sent in £100 raised by the participants of a fantasy football league.

In Memory of

Donovan Blackbeard

Lauren van Zyl took part in the Nike Women’s 10K and raised £300.

In Memory of In Memory of

Joshua Bents

Gareth Bents sent in total donations of £420.

Steven Blair

Susan Blair sent in a total of £1,805, including £520 raised through collection pots and £900 raised through the 10 Miles for Steven event.

Issue 68 | September to December 2015

Our Fundraisers In Memory of

Mathew Blease

Jessica Stevens raised £265 through taking part in the Sure Run to the Beat 10K 2015.

Club and Saltford Football Club (both of which Jack was a member). Keynsham Cricket Club won 4–2 on the night after a well-contested game and were delighted as this was the first time they had been the victors. There was also a raffle, auction, BBQ and cake stall; the event was very well supported by friends and the local community.

In Memory of

Graeme Blenkinsop

• Ayesha Amin raised £1,038 through a fun day selling cakes and holding a namethe-teddy competition. • Laura Bryant sent in a donation of £100.

In Memory of

Matthew Bond

John Potts sent in £580 raised through the annual Matthew Bond Memorial Cricket Shield.

In Memory of

Jack Boulton

• Angela Trenchard raised £370 through the Walking Camino event. • Scott Tweedie took part in the Bath Half Marathon and raised £540. • Natalie Mott sent in £888 raised through a football match. • June Boulton sent in £1,449 raised through a football match: “Jack’s Match was celebrated on May 29 at Saltford playing fields. The evening kicked off with a ladies match (result 3–1 to the blues) followed by Keynsham Cricket

www.c-r-y.org.uk

• June Boulton sent in £1,510 raised through a disco at Saltford Golf Club and £274.64 from the Keynsham screening, making a total raised of £1,784.64. • Gary IIes and Andy Sady sent in £335 raised through the Cyder Cup. “Saltford Golf Club held the annual Jack Boulton Trophy competition on 17 October 2015. 22 teams of four played (format of

Our Fundraisers junior, lady, senior and club player). The weather stayed fair and dry and a good day was enjoyed by all who took part. The winning team was made up of Dylan John (junior), no lady, Darren Moxham, Pete Jeffreys and John Currie (senior) who scored 96 points. Dylan is pictured with the trophy. Also pictured (left to right) with Darren Moxham, Pete Jeffreys and Matt Baker (club captain).” June Boulton.

In Memory of

Gregory Brookes

David and Hayley Liepins raised £1,255.75 through their sixth annual golf day.

In Memory of In Memory of

Ian Bowen

Maralyn Bowen raised £158 through a tombola event held in Morrisons.

In Memory of

Dave Bramwell

Lisa and Philip Bramwell sent in screening donations of £565.

Steffani Broughton

• Irene Broughton and friends walked six 26-mile walks with the Kiltwalk and raised £985. • Laura Campbell took part in a skydive and raised £1,258. • Ian and Irene Broughton sent £750 raised through a charity event at Beith Community Centre.

In Memory of

Carolyn Broussely

In Memory of

Paul Brenchley

Caerie Mackintosh sent in £1,180.70 raised through a charity lunch at Narberth Rugby Club.

Marc Broussely took part in the Trans-Pyrenees event and raised £763.33.

In Memory of

Alex Brown

In Memory of

Michael Brennan

Maeve Fearon took part in the Morrisons Great Manchester Run and raised £210.

In Memory of

Alan Bretherick

• Naomi Williams took part in a skydive and raised £242.50. “On the August 6 2015, Naomi Williams took part in a skydive over the beautiful Palm Jumeirah in Dubai. A skydive has always been one of Naomi’s personal goals, she was going to do it for fun but decided she wanted to see if she could raise some money for two worthy charities; the Lymphoma Association for her

Andrew Moody raised £525 through taking part in the Morrisons Great North Run 2015.

In Memory of

Ben Broadbent

Rosie Mawer took part in the Humber Bridge Half Marathon and raised £403.10.

Issue 68 | September to December 2015

Our Fundraisers nanna and CRY: ‘I am raising money for CRY, the reason I chose this charity is because a friend and colleague of mine recently lost her boyfriend Alex from a sudden cardiac death. He was 25. I had never heard of this charity before and I hadn’t realised that 12 young sudden cardiac deaths occur every week in the UK and that many of these deaths are preventable through cardiac screening. I know that Alex’s loved ones are also doing fundraising of their own but I hope that I can also raise some money for this charity to help with their efforts.’ Well done Naomi and thank you.” Rachel Dingle. • Bradley Simpson took part in the Wolverhampton Marathon and raised £120. “On Sunday 6 September 2015, Bradley Simpson, one of Alex’s close friends from school, took part in the Wolverhampton Half Marathon. Brad completed the half marathon in just over two hours – not bad for his first run over eight miles – he did have some war wounds with a massive bloody blister on his heel! He was actually 10 minutes late for the start of the run and only had a Mars bar for breakfast! Not bad I’d say. Well done Brad! He raised £120 for CRY.” Rachel Dingle. • Sue Brown, Rebecca Marshall, Rachel Dingle, Jan Brookshaw, Julie Marshall, Tom Marshall, Mitchell Marshall, Martin Dingle, Hannah Bytheway, Adam Littleton, Jill Conry, Daniel Hill, Tarryn Smith, Rebecca Hill, Amy Lane, Emma Weston, Louise Malkin, Kelly Rooker, Barry Keough, Janette Keough, Beverley McBean, Lyndsay Stephenson, William Young, Ashley Blakemore, Mark Stevenson, Laura Green, Karen Ward, Nicola Green, Samuel Whitehouse, Pat McAuliffe, Russell Higgs, Matthew Pearson, Jennifer Taylor, Steven Taylor, Bradley Simpson, Leon Miles, Sarah Starkey, Elizabeth Blakemore and Giles Hopgood took part in the CRY Heart of London Bridges Walk 2015 and raised £3,464. • Rebecca Marshall sent in a total of £4,465 in respect of various fundraising activities and donations from friends and family.

www.c-r-y.org.uk

In Memory of

David Brown

Natalie Bridgman and Laura Miles organised the Diamond Ball and raised £3,211.33.

In Memory of

Leanne Brownhill

Lynne Brownhill sent in a total of £3,780.56: Leanne’s Summer Ball 2015 and Kyle Ward’s memory wristbands raised £3,386.56; The Bridge Inn in Ludlow car boot sale and children’s Easter egg hunt raised £73; Bomere Heath Co-op store donated £121; Tesco Ludlow’s family fun day raised £100; and Susan, Graham and Nathan Caroll raised £100.

In Memory of

Nina Buck

Eleri Buck, Fleur and Evie took part in the Cardiff Half Marathon and raised £877.

In Memory of

Alex Buckler

• Jan Juneman held a coffee morning and raised £230. • Rosalind Buckler sent in £202 raised through the annual Ballards Bowmen Archery Shoot. “The club has been shooting on the farm for 45 years and it was founded by my father! 81 archers arrived to a foggy start to the day. The catering team were ready with hot food and drinks. After the routine of putting bows together, shooting the practice bosses to ensure all was well bedded in, groups were led out to their targets. The course consisted of 36 3D animal targets layed out around the Pear Ash ground. The weather stayed dry and the feedback from the archers at the end of the day was excellent. Another successful event.”

In Memory of

Dr Jenny Bucknell

• Dorian Mead sent in £200 from Staines Round Table raised at a fireworks event.

Our Fundraisers • Hillary and Bill Durrant sent in a donation of £2,100 raised through a craft, coffee and cake event: “A two-hour craft, coffee and cake extravaganza in October at Horton Village Hall, Somerset, resulted in raising £2,100. A huge thank you to the craft makers, tea, coffee and cake makers and of course those who supported the event, that made all the many, many hours of skilled making worth while.”

In Memory of

Jordan Bullock

• Sophie Semmence took part in the Isle of Wight Walk and raised £767. • Simon Bullock raised £874 through taking part in the Prudential RideLondon-Surrey 100 2015.

In Memory of

Craig Burling

Craig Parker took part in the London Triathlon and raised £135.

In Memory of

Jordan Burndred

• Carina Collis sent in £110 raised by customers of The Cellar Bar, Stoke-onTrent. • Julia Parker at Parker Software sent in £2,500.

In Memory of

Nathan Butler

• Ian Cassidy took part in the Three Peaks Challenge and raised £720. • Angela Butler sent in £500 raised through the Bradwell Lodge fun day: “Bradwell Lodge Residents’ Association held a fun day on Saturday 1 August 2015. This was a fun-filled family day with lots of activities going on and many stalls selling a variety of goods. All of the proceeds from the tombola stall were donated to CRY and I received a cheque for £500 at this presentation.”

• Angela Butler sent in £3,185 raised through a memorial cricket tournament. • Daman Rhodes took part in Born Survivor Manchester and raised £214. • Mr and Mrs V Bevington celebrated their golden wedding anniversary and sent in £120 donated in lieu of gifts. • Stephanie Cartledge celebrated her 50th birthday and sent in £230 donated in lieu of gifts: “I decided for my 50th birthday party I wanted to make a difference, albeit small, to two charities close to my heart and felt that my lovely friends and family would support me with this. Rather than presents, I made a request for donations at my party! “One of my charities was the “Nathan at my 40th” local hospice and my other choice was CRY. Nathan Butler was the son of friends of ours, we watched him grow up into a fun-loving young man who was loved by all who knew him. His sudden death at the age of 16 not only

Issue 68 | September to December 2015

Our Fundraisers stunned and devastated his family but also the many friends who knew him. Nathan was the DJ at my 40th birthday party and in the weeks leading up to my 50th party we thought about him even more. “It gave us some comfort knowing that our donation to the Nathan Butler Memorial Fund would go a small way to potentially making a difference to another family’s life. We hope that people continue to recognise all of your good work; and are grateful that our own children have had the opportunity to be screened.” • Jack Crossley took part in the NCS 500-mile cycle challenge and raised £360. • Angela and Philip Butler sent in £760 donated in lieu of gifts at Angela’s mother’s 90th birthday party.

• Tim Rampton raised £1,095 through taking part in the Prudential RideLondon-Surrey 100 2015.

In Memory of

Alex Camilleri

• Marion Dowling sent in a donation of £100. • Lindsay Turner took part in the Nike Women’s 10K and raised £344.

In Memory of

Arabella Campbell

• Elly Brindle sent in a matched giving donation of £1,000. • Joanne Barden held a strawberry tea event and sent in online donations of £255.

In Memory of

Graham Button

Hollie Button sent in £155 raised through a spring fête.

In Memory of

Michael Cadman

Ian Cadman sent in a total of £280: Commercial Inn, Arbroath, raised £217 from a collection box; Towerhouse Hotel, Arbroath, raised £21.67 from a collection box; DSV Seven Discovery raised £23.33 from a collection box; and Angus Machine Knitters raised £11.50 from the sale of wool donated by Michael’s granny, Elsie Cadman.

In Memory of

Yasmin Caldera

• Nicola Caldera sent in £143 raised by Julia and Steve Holden bowling a ball at a bottle of champagne.

www.c-r-y.org.uk

“On Saturday 11 July friends and family of Arabella gathered to raise money for CRY, to remember Arabella and to raise awareness of sudden cardiac death. The tea was conceived and hosted by Jo and Mark Barden whose eldest daughter, Holly, was Arabella’s best friend since they were four years old. “It was a beautiful, sunny afternoon and in addition to at least 20 different cakes, dozens of scones, kilos of strawberries and litres of cream there was a huge assortment of handmade items on sale and a raffle packed with enviable prizes. We produced and

Our Fundraisers sold a recipe book for students drawing on memories, sometimes 20 years old, of something tasty on a budget. “We asked Arabella’s friends to commit to holding their own fundraising event over the coming year – because most of them are going to university or travelling – and almost as important as money is raising awareness.” • Hayley Richardson, Caroline Alderson and Pixie-Lola Richardson took part in the Middlesbrough Tees Pride 10K and raised £200. • Antony Wootton sent in total matched giving donations of £2,991.56 on behalf of the ACT Foundation. • Georgia Lockstone raised £350.87 through taking part in the Hampton Court Half Marathon. • Myles Davidson raised £715 through taking part in the Prudential RideLondon-Surrey 100 2015.

In Memory of

Ian Campbell

Sandra Campbell sent total donations of £460 received in lieu of floral tributes for her husband Ian.

Latin American woven into it. Kev Howard also performed two solo didgeridoo pieces, something rarely heard in Saltburn! Local artists were also involved in visually entertaining the audience, with artwork and photography from the incredibly talented didgeridoo-playing Kev Howard and Clare Hansford being digitally displayed while the artists performed. All proceeds from the night will be used in James’s memory to screen young people locally for hidden heart conditions. Before losing James we had never heard of CRY but as a family we do not want James’s death to have been in vain so we will continue to raise funds and awareness for this amazing charity.” Karen Campbell. • Jackie Catchpole raised £268.28 on her 50th birthday.

In Memory of

James Campbell

• Mark Boden organised the Flamenco Con Fusion event and raised £584.35. “Mark Boden, Middlesbrough vocalist/ flamenco guitarist and cousin of James Campbell, organised an evening of ‘Flamenco Con Fusion’ at The Earthbeat Centre, Saltburn, on Saturday 6 June. Local singer-songwriter Charlotte Brown kicked off the evening with a great mix of acoustic pop and was followed on stage by Richard Boden, brother of Mark, and his partner Martha Kearney who sang as a duo (alt/folk) with Richard playing guitar – both acts gaining rapturous applause from the audience. Blues and rock performer, John Byers – who has played the Dunbar Music Festival, Scotland – finished off the first half of entertainment. The second half of Flamenco Con Fusion featured Mark Boden (flamenco guitar/vocals); Phil Philo (flamenco guitar); Jamie Donnelly (bass), James McCann (cajon) and Kev Howard (didgeridoo). The music was very much a fusion of modern and traditional Flamenco with many other styles; jazz, fusion, Indian, Cuban, Aboriginal and

“Jackie Catchpole hosted a morning of Zumba at the start of her very special birthday on Sunday 26 April, getting together with friends and other Zumba nuts to raise funds for CRY. Jackie was James’s clarinet teacher during his time at Macmillan Academy and he played at every concert and various events throughout his six years there. “Jackie wanted to do something to remember James and said she would like to do something different to start her birthday celebrations off! Tea and birthday cake was served from 11 until 12 and Jackie then continued her birthday (21 again with 29 years’ experience!) celebrations with family and friends into the evening, raising £268.28 in James’s memory.” Karen Campbell. • Charlotte West raised £616 through taking part in the Morrisons Great North Run 2015.

In Memory of

Andrew Cannon

George Cannon sent in £100 in lieu of a Christmas gift for his son.

Issue 68 | September to December 2015

Our Fundraisers In Memory of

Andrew Carter

Marian Edge sent in a donation of £200.

In Memory of

Adele Cashman

Matthew Truscott, James Ellis, Josh Furniss and Benji Tembey-Barnard took part in Ironman Vichy and raised £3,079.79.

In Memory of

Lee Caulfield

• Lindsay Chapman took part in the Great Scottish Swim and raised £560: “My swim went really well, I loved every minute of it. I was the first female to finish in my heat and my overall position was 217th out of 2,600 swimmers, so I am chuffed to bits.”

In Memory of

Olivia Chase

Fiona Collins took part in an 80m abseil down the Olympic tower and raised £225.

In Memory of

Anthony “Budgie” Child

Angie and Jack Child sent in £1,446 raised through the annual line dance: “On August 22 we held our 10th annual CRY charity line dance in memory of our dear son Anthony (Budgie) Child. Our good friend Kim organised the event, ably supported by Natalie Thulow who did two great sets to keep us all dancing. With the aid of a raffle, tombola and auction (donated hamper) plus entrance fee we raised £1,446 on the night. Once again, many thanks to all our line dance friends for their continued generosity and support over the years.”

In Memory of

John Chapelhow

Jan Sawyer raised £750 through taking part in the Morrisons Great North Run 2015.

In Memory of

Luke Chapman

Angela Jones at Lily Blue Gifts and Home sent in £197.48.

www.c-r-y.org.uk

In Memory of

Emma Chileshe

Steve Jeffery sent donations of £1,198.12 received in lieu of floral tributes for his wife.

Our Fundraisers In Memory of

Katrina Christopher and Cheryl Christopher-Webber

• Viv Christopher-Webber sent in a total of £168: Gill Hughes held a “tropic” party and raised £45; Phil Johnston donated £10; and Katrina’s daughters Erin and Sadie held a picnic and raised £113: “My daughter had her 10th anniversary this year and my granddaughters Erin and Sadie hosted a picnic in their mum Katrina’s memory. They held a small raffle and managed to raise £113 for CRY. They also dedicated a beautiful dance to their mum which they choreographed themselves! The night was finished by a balloon release. Well done girls, your mum would be so proud!”

• Walkers in memory of Katrina and Cheryl took part in the CRY Heart of London Bridges Walk 2015 and sent in an additional £1,152.49, making a total raised of £2,772.49.

In Memory of

Tom Clabburn and Claire Prosser

• Jane Kinghorn and Stephanie Marshall raised £2,568 through taking part in the Morrisons Great North Run 2015. • Grace Matthews took part in the Plymouth Half Marathon and raised £154. • Charlotte Johnson took part in the Edinburgh Marathon and raised £865. • George Pearson took part in the Ealing Eagles 10K and raised £835:

“CRY supporter George Pearson completed a 10-mile Tough Mudder endurance event and the Ealing Eagles 10K on successive weekends to raise money and awareness for Tom and Claire’s Fund. George said after the Sunday 10 May race in Gunnersbury Park, Ealing: ‘The 10K was hard, especially as I’d thought it would be a breeze after the Tough Mudder event the previous Sunday. It turned out to be as much of a struggle but was still well worth it. I finished 67th overall in 00:43:57, which was a personal best, so I was pleased with the result, really pleased!’ “Reflecting on the two events, George said: ‘It’s been a nearly 30K run over three hours on two Sunday mornings and along the way there has been tear gas, ice baths, log carries, electroshock therapy and lots and lots of mud. But to create awareness for what is an important cause and raise 160%+ of my target was an incredible part of what was also a fantastic experience. It’s the first of many fundraising journeys on my part, running for those who can’t.’ As ever, huge thanks to George for putting in the miles on behalf of the fund.” Paul Clabburn. • Juliette and Saul Westbrook took part in the Virgin Money Giving London Mini Marathon and raised £285. • Paul Clabburn sent in a donation of £300. • Anne Reilly sent in £330 raised through a book sale. “The sun shone and the crowds flocked to the Brentford Festival where a book sale in aid of Tom and Claire’s fund attracted plenty of attention on Sunday 6 September. The stall was organised by members of Claire’s book group; Anne Marie Reilly, Marita Eager, Debbie Young, Justine O’Driscoll and Vanessa Boulter. ‘We made £330 and,

Issue 68 | September to December 2015

Our Fundraisers just as importantly, spoke to lots of people and handed out leaflets,’ said Anne Marie. ‘Lots of people of all ages stopped to read the information even if they didn’t buy, so all in all it was a very satisfying day.’” Paul Clabburn.

Ealing Half Marathon, managed to visit all 270 – yes that really is 270 – London tube stations. The Walk the Tube challenge began at 4:45am and ended late in the evening. It was led by Geoff Marshall, who previously held the Guinness World Record for navigating all the stations in the fastest time. “The pair raised funds for the Alzheimer’s Society, the Ealing Half Marathon’s headline charity for 2015, and also for CRY, walking in memory of Tom and of Andrew Carter. Andrew took part in the 2014 Ealing Half Marathon, but the 33-year-old runner from Ealing collapsed near the end of the race following a cardiac arrest and died on October 1.” Paul Clabburn.

“Justine O’Driscoll, Debbie Young, Anne Marie Reilly and Vanessa Boulter”

• Jane Bradley took part in the Shock Absorber WomenOnly Swim and raised £177.50. • Gordon Prosser sent in £545 raised from a collection box. • Hannah Dunn took part in a skydive and raised £1,287, including a matched giving donation from Lloyds Bank Foundation: “I am so pleased to be able to give something back to CRY which I know is an amazing charity. This is in loving memory of Tom Clabburn and Claire Prosser. Well – I did it. What an awesome experience! One of the best days of my life.”

In Memory of

Jonathon Clark

Jennifer Clark sent in a donation of £2,800.

In Memory of

Nick Clay

Christopher Clay sent in £1,563.75 raised through the Investec Ashes Cycle.

In Memory of

David Cochrane

In Memory of

Tom Clabburn and Andrew Carter

Kelvin and Sandra Courtney took part in the Walk the Tube 2015 event and raised £913.85. “Sandra Courtney and Kelvin Walker, organisers of the

www.c-r-y.org.uk

• Ray Newton and Martin Nelson of Lodge Hopetoun St John sent in a total of £1,638.50 raised through a sponsored walk. • Plexus Corp nominated CRY as their charity of the year and raised £6,185.74, including £2,124 in respect of Ray Newton and Martin Nelson’s fundraising walk. • David Paterson sent in £373 raised through the Walk for Jock event.

Our Fundraisers In Memory of

Jeremy Cole

Adam Shergold took part in the Hever Castle Triathlon and raised £1,360.

In Memory of

Stephen Connor

Ryan Scott sent in £179 on behalf of St Ambrose Players, Leyland.

In Memory of

Matthew Cooper

Peter Brown raised £3,540 through his online JustGiving page.

In Memory of

Bruce Cousins

Jackie Cousins sent in £108.50 raised at her latest collectibles stall and £311 raised at an annual get-together, organised by Bruce’s friend Nathan Fereday, making a total raised of £419.50.

Jenny Conway

Dawn Johnson sent in £200 raised from colleagues and friends at Staffordshire police through a monthly dress down day.

In Memory of

Kris Cook

• Kirsten and Ben Stiles took part in the Surrey Tempest 10 and raised £345: “We decided to take part in this year’s Surrey Tempest 10-mile run to raise money for CRY; a cause that has become important to us in the past year. The great British springtime weather did not disappoint on the day and it was a wet, windy and hilly run, but we were spurred on when remembering what we were running for. We are happy to say that we beat our goal times as well as hitting our sponsorship target, and are really grateful for all the support.”

“Lyla and Harley – Bruce’s cousins”

In Memory of

Nigel Cox

• Janet Wedge sent in £340 raised from her triple celebration party in respect of her husband’s 60th birthday, his official retirement from work and their silver wedding anniversary. • Tracey Cox and Pam and Paul Northcott sent in a donation of £100 in respect of the silver wedding anniversary of Janet and Steven Wedge.

In Memory of

Matthew Cragg

• Sarah Bassett, Paul Bayfield, Andrew Hassall, Jessica Hassall, Jamie Higgins, Marie Howse, Andrew Lougher, Emma Marcarian, Lee Munday, Sam Ottolangui, Lucy Parker, Andrew Tait, Nicola Tait and Sarah Thumwood took part in the Prudential RideLondon-Surrey 100 2015 and raised a total of £9,349.

• Lizzie Uttley, James, Anthony and Nay took part in the Leeds Half Marathon and raised £689.91. • Becky Halse took part in the Hackney Half Marathon and raised £740.83. • David Fraser sent in a donation of £500.

Issue 68 | September to December 2015

Our Fundraisers • Paul and Debbie Cragg sent in total donations of £5,292. • Goldman Sachs sent in a matched giving donation of £100.08 in respect of Sarah Mook taking part in the Blenheim Half Marathon. • Katie Reynolds raised £1,120 through taking part in the Morrisons Great North Run 2015.

In Memory of

Hayley Crook

Rod Crook sent in a donation of £11,830.

In Memory of

Stuart Cutler

• Ann Duckett at NHS 24 Tayside Local Centre sent in a total of £651.91 raised through various fundraising events including dress down days, car boot sales and raffles. • David and Natalie Cutler raised £250 through a Texas scramble held at the Winterfield Golf Club.

In Memory of

Adam Dabell

John Dabell sent in £600 raised through the Adam Dabell Memorial Football Match at East Grinstead Town FC. “Once again there was a large capacity crowd of extremely good-natured, mainly young people. The Sackville v Imberhorne ‘Old Boys’ match kicked off the evening and, as always, with sheer enthusiasm kept us entertained before the main event. Then, the Imberhorne v Sackville Sixth Formers treated us to 90 minutes of excellent football. The stand, indeed the whole ground, came alive to some very robust support for both sides. The teams came out at the start of the match looking evenly matched and, with great skill, entertained with some great football. It was finally Imberhorne who, with tenacity, secured a 4–2 victory. “My men of the match for Imberhorne were Tom Piller from a defensive point of view and Chandler O’Dwyer from an attacking perspective. Fantastic team effort from both teams.

www.c-r-y.org.uk

“Excellent game, physical and skilful and an enthralling game to watch. This is the 12th match in memory of Adam and Imberhorne now lead 7–5 in the overall headto-head. I reminded everyone that it is now 11 years since the death of Adam to an undiagnosed heart condition and made special mention of Matt Cox, the 21-year-old former Sackville pupil who recently died under similar, tragic, circumstances.”

Freya Dalrymple

• Kanesh Pankhania took part in Tough Mudder Scotland and raised £1,134.60. • Ingrid Dalrymple sent in a total of £695.76, including £231 raised by Kanesh Pankhania from taking part in a Tough Mudder event; £250 raised by the Orkney Rowing Club; and £89.11 raised by customers and work colleagues at Papdale Stores. • Brian Cromarty at ROAR sent in £2,160 raised through “A Big Night of Music”: “During the summer, the ROAR group (a youth volunteering events committee supported by Voluntary Action Orkney) held a big night of music in Kirkwall’s Sailing Cub. Ten local bands gave their time to contribute, and we also had an auction.”

In Memory of

Ben Daniels

• Adam Essex sent in £350 raised through Why Not Run? • Richard Pearce raised £295 through a drive from Blackpool to Benidorm. • Peter Baylis raised £1,040 through taking part in the Prudential RideLondon-Surrey 100 2015. • Craig Catling took part in Why Not Run? and raised £130.

Our Fundraisers In Memory of

Neil Darby

Robert Hockham and Peter Bowden sent in £480 raised through a function night.

In Memory of

Claire Dee-Shapland

• Jane Paisley at ServiceMaster Clean sent in £100 raised by staff. • Katherine Lovell took part in the CRY Heart of London Bridges Walk, the Bristol 10K and the Bristol Half Marathon and raised £335.

In Memory of

Claire Dee-Shapland and James

Mark Dee-Shapland sent in a donation of £100.

Thames Path Challenge. • Bernadette Lunt sent in £100 raised through husband Ken and son Harrrison walking 90 miles along Hadrian’s Wall. “In December 2014 I had to choose a subject that I have a particular interest in for an AS level project. I decided that, owing to the fact that my mother’s family has a long history of cardiovascular disease and out-of-hospital sudden cardiac arrests, I would do my project about this subject, with an aim of raising awareness and fundraising for a defibrillator for school. “I couldn’t believe the response I had from many of my fellow students. Initially they just didn’t think that there was any point in buying a defibrillator, I was told by more than one person that it was ‘a waste of money’! The only people who they thought had cardiac arrests were old. Through my defibs page I came across Sue Dewhirst’s CRY for Matthew page. Sue was really helpful. She offered to come to my school, Brine Leas in Nantwich, and give a talk about cardiac risk in young people. This was the turning point! So, moved by her talk and her tragic story of Matthew’s death at only 17, the same age as the group of students she was talking to, finally people began to understand and believe. Not only students, but teachers and staff also.

In Memory of

Conor Delaney

Amanda Crees took part in the Great Birmingham 10K and raised £130.

In Memory of

Matthew Dewhirst

• Rose Pescod held a garden party and raised £100. • Sue and Chris Dewhirst sent in £3,500 raised through various fundraising events including “Tales from the Salon” with Royston Blythe; Crewe Alexandra new season shirt raffle; Cheerbrook Farm fun day; a donation from Tension Square, Edinburgh Fringe Theatre; Dearnford Lake car boot sale; and bag packing at Stans Supermarket, St Martins.

“The journey started on July 21 and I walked 90 miles with a rucksack, supplies and a tent on my back with my dad. The full story with photographs can be still be seen on the Facebook page. My hope is that the screening dates will be a success and that those that didn’t believe me about the prevalence of cardiac risk in young people, or who have the ‘it’ll never happen to me’ mind-set, are now aware that it could, and so take part in the screenings. Some of my friends have said they don’t want a screening as they’d rather not know. I am still trying to persuade them otherwise, and I will keep on trying!” Harrison Lunt.

• Rose Pescod, Joe, Mark and Molly took part in the Thames Path Challenge and raised £2,131.38.

For the diary of Harrison’s walk visit www.c-r-y.org.uk/ hadrians-wall-trek-in-memory-of-matthew-dewhirst

• Brabner LLP sent in £1,000 in respect of sponsorship for Rose and Joachim Pescod taking part in the

• Howard Jones and Sebastiano Siddi raised £550 through taking part in the Lake Vyrnwy Half Marathon.

Issue 68 | September to December 2015

Our Fundraisers In Memory of

Martin Doherty

Helen Hollins took part in the JCB Mud Run and raised £245.

“This was my first half marathon, and after four months of many hours spent plodding around the lanes around my home in Bronygarth the day finally dawned for the race. We couldn’t have been any luckier as the day dawned clear and dry, with even an occasional glimpse of the sun! Around 2,000 runners of all ages lined up, and the sizable crowd provided a fun atmosphere. We took off up the hill, across the famous dam, and then headed right around the lake. There was a real party atmosphere with lots of banter amongst the less serious runners! Two hours later and we were back at the start line, with aching legs but strong hearts. T-shirts and medals were handed out, which we put on with a mixture of price and relief! Keep up the great work guys.” Howard Jones.

In Memory of

Martin Doig

• Jan Doig sent in a donation of £200. • Jenny Burnley took part in the Edinburgh Half Marathon and raised £125.

In Memory of

Adam Donnelly

• Sandra Clark organised a riverboat disco and raised £1,300. • Julie Donnelly took part in the Color Run and raised £370. • Brigid Williams took part in the Three Peaks Challenge and raised £445. • Julie and Ted Donnelly sent in £379.70 in respect of screening donations.

In Memory of

Luke Dickinson

Rebecca Dickinson sent in a total of £700; the Green Squirrel Public House charity day raised £490 and Jonathan Hardman raised £210 through completing the Great North Run.

In Memory of

Adam Drawbridge

Ann Fleming sent in a donation of £150.

In Memory of In Memory of

Aaron James Dixon

• Gary Dixon sent in a donation of £1,000. • Tony Dearden celebrated his 50th birthday and sent in £903.77 donated in lieu of gifts. • Hollie Dixon sent in £3,918.25 raised through Aaron’s Someone Special page.

www.c-r-y.org.uk

Bailey Drew

• Nicholas Blythe took part in the Humber Bridge Half Marathon and raised £162. • Anne Prothero sent in £211.03 raised by the students at Charles Read Academy. “A state of the art all-weather 3G sports pitch was officially opened and named in memory of Bailey Drew, who died suddenly in May 2014. Bailey’s family were able to join us and England international footballer Sue Smith unveiled a plaque in his name. We were also joined by David

Our Fundraisers • The Compass Minerals Charity Committee sent in £350 raised in respect of the Winsford 10K.

Robertson, first team manager of Peterborough United. He was moved by Bailey’s story and told us he was already a strong supporter of your organisation. We managed to raise a further £85 on the day with just our students and a handful of local representatives. David himself has a pacemaker fitted, he told me.” Robert Sloan, Principal.

In Memory of

Robert Drummond

Shona Cannings raised a total of £398 through taking part in the Morrisons Great North Run 2015.

In Memory of

Harry Dubois

• Rachel Hughes took part in the Chester Half Marathon and raised £205. • Julie Woods raised £235 from taking part in the Llanelli Waterside Half Marathon. • Mario Dubois sent in a total of £418.72 in respect of screening donations.

In Memory of

Emily Rose Dunn

• Gordon Dunn sent donations of £2,480 received in lieu of floral tributes for his daughter. • Ruth Turner sent in a donation of £120. • Alison Hayes sent in a donation of £160.

• Dale, Mansfield, sent in £500 in respect of Compass Minerals taking part in the Winsford 10K. • Empress Connect sent in £200 in respect of Compass Minerals taking part in the Winsford 10K. • The Engineers Lodge, Derbyshire, sent in £500 and a matched giving donation of £500 from the Province of Derbyshire of Freemasons, making a total raised of £1,000. • Sheree Dunn sent in £2,507.08 raised through an Italian evening and auction. • George Orton sent in a donation of £200. • Megan Wynne raised a total of £1,510 through taking part in the Morrisons Great North Run 2015. • The Indigo Trust sent in a donation of £4,000. “The Indigo Trust is a UK-based grant-making foundation that funds technology-driven projects to bring about social change, largely in African countries. Indigo also supports a small number of UK-based charities. Every year, usually around Christmas time, each member of the Indigo Team is allowed to select a UK charity of their choice to receive a grant. One of Indigo’s team, Louise, is Emily’s aunt. To support the work of CRY and in acknowledgement of the sad loss to all of Emily’s family the Trustees readily agreed to give a generous donation in Emily’s memory.” Louise Vickers.

In Memory of

Rebecca Duxbury

Lindsay Chapman and Lesa Waring sent in £510 raised through a Halloween charity event at the Olde England Kiosk.

Issue 68 | September to December 2015

Our Fundraisers In Memory of

Annie Edwards

Mike Bonsor took part in Just Walk, the Burgess Hill Bike Ride and the London to Brighton Night Ride and raised a total of £839.91.

In Memory of

Rory Embling

• Chris Embling sent in £740 at the memorial opening of Rory’s pub, “Rory’s Return”.

In Memory of

Sebastian English

Mark Flower sent in £14,000 raised through the Basingstoke Rotary Club arranging a ball with Lord Wandsworth College: “The ball was held in a marquee at Lord Wandsworth College with over 250 people attending. There were live and silent auctions, a raffle and quiz game raising over £28,000 which was shared between local charities supported by Basingstoke Rotary Club – and the £14,000 to CRY. A very successful and enjoyable evening.”

• Chris Embling sent in £3,000 prize money after winning Games Room of the Year for Rory’s Return.

“Vanessa Tardif, a local CRY supporter”

“Colson Smith (who plays Craig in Coronation Street) was a friend of Rory’s. They had a great love of Leeds United in common”

• Francesca Embling raised £560 through a zip wire across the River Tyne at Gateshead. • Chris Embling sent in £105 raised through a make-up party held at Rory’s pub. “We held a make-up party for Younique make-up. The hostess was Chantel. The event was attended by family and friends. Chantel gave her commission on the night to CRY. The £105 was raised via a raffle on the evening. Thanks to all who attended and supported.” Francesca Embling.

“Me with Maria Miller, our local MP”

In Memory of

Sebastian English, Howard English and Keith Newton

Phil Austin took part in a gymathon and raised £2,572. “As my husband, Phil, was sweating on the cross-trainer in our garage during the summer, he started thinking about how his exercise could be of greater benefit than just to himself. He came back into the house with an idea! He

www.c-r-y.org.uk

Our Fundraisers would row on his rowing machine and crosstrain 160 miles – the equivalent distance from Porthcawl, South Wales, where my brother Howard was born and grew up, to Haslemere, Surrey, where my nephew, Howard’s son Sebastian, grew up. “It took the tragic deaths of three young people in my family before the cause – ARVC – was identified. My cousin Keith died after stepping out of the bath at the age of 22. He left his wife and three-week-old baby boy. Eight years later, Howard left for rugby training and never came home. He collapsed and died on the pitch leaving his wife, Stephanie and their three young children, Sebastian, 5, Sabrina, 3, and Titus, 1. Just over 10 years later Sebastian collapsed and died during a game of rugby in chillingly similar circumstances to his father. He was 15. We now know that Keith, Howard and Sebastian all died from ARVC. We were fortunate that the gene responsible was identified a few months after Sebastian died. “So this is why a 58-year-old businessman decided to spend three and a half days in September in his garage and get people to give him money to do so! We emailed and texted loads of people, daughters posted it on Facebook and we even created little ‘business cards’ which told the story and gave them out to people we met dog walking, out in town or at a rugby dinner! The challenge started on September 21 at 9am. Five miles equated to 35 minutes rowing and 40 minutes crosstraining and Phil alternated between the two, with breaks to completely change his (very wet) kit, snack and replace some fluids. He intended to cover 40 miles a day so that the challenge would last 4 days but by 3:30 he said he was feeling good and carried on – completing an amazing 50.5 miles! My main job was to ensure all changes of kit were washed and dried and ready to wear for day 2 and to put all data (distance, calories, times, etc.) into the inevitable (for those who know Phil) spreadsheet.

“Thursday 24 September, fourth and final day of the challenge, with the end in sight! I joined Phil for half an hour cross-training during his last rowing session and we texted Steph when he was 6 miles from Haslemere to tell her to get the kettle on. Our friend Sian appeared as he started his last 3 miles so it was great to share the end of his achievement with someone else – and have someone there to take a photo of us both! The challenge was completed at 1pm – time for a hot bath, a good lunch and a few beers tonight!” Elaine Austin.

In Memory of

Sebastian English and Michael Thompson

Mr B Thompson sent donations of £100 received in lieu of floral tributes for his father Michael.

In Memory of

Sebastian English, Michael Thompson and Veron Thompson

Richard Latham sent in a donation of $240.

In Memory of

Harry Faulkner

• Jan Cheek at the Met Police SCDI Social Club sent in £300: “The SCD1 Social Club is a small section of the Metropolitan Police with approximately 230 members; police officers and civilian staff. It has been running for 20-plus years and holds various events/ trips during the year for its members. At some of these events we do collections for charities. We aim to donate to a couple of charities a year. One of our members, John Hughes, put forward your charity.” • Patrick Tolan took part in the End to End Challenge and sent in £1,999.55. • Paul Johnson sent in a donation of £100. • Donna and Stefan Faulkner sent in a £100 donation made by Emma Carter at a recent screening. • Xena Marshall raised £160.91 through taking part in the Morrisons Great North Run 2015.

Issue 68 | September to December 2015

Our Fundraisers In Memory of

Conor Feeney

John Feeney sent in £400 raised through an auction of an Arsenal football shirt.

In Memory of

Josh Fell

• Donna and Rich Fell sent donations of £622 received in lieu of floral tributes for Josh’s granddad. • Alison Rogers took part in the Coasts and Castles Challenge and raised £315. • Donna and Rich Fell sent in a total of £1,580; a skydive raised £1,050 and the local chemist raised £530. • Adrian Hedges, Tom Moore and Stephen Prescott took part in skydives and raised a total of £1,100. • Alison and Steve Rodgers took part in the Drax Cycle Challenge and raised £725. • Neal Everingham, Matty Smith, Wayne Pickersgill and Paul Wild took part in cycling the Way of the Roses with WP Everingham & Sons and sent in £2,891.14.

In Memory of

Bruno Fernandes

Shannen Hill raised £200 through taking part in Run or Dye.

In Memory of

Therese Field

Tara Field took part in a charity James Bond evening and raised £503.

In Memory of

Thomas Fleetwood

• Elise Fleetwood sent in £401.66 raised from a recent screening event. • James Perrins and Danny Margerum raised £3,755 through taking part in the Prudential RideLondon-Surrey 100 2015.

In Memory of

Andy Forbes

Steven Garton forwarded £1,655.94 raised through Tesco’s supply chain function.

In Memory of

Joanne Fotheringham

• Alex Fotheringham sent in a total of £493.07: a class of 1990 reunion raised £110; Red Hot Pokers raised £50; a funeral collection for T Dennison raised £211.07; additional donations amounted to £52; and Lady Jane Rice donated £70. • Beverley Gilmour sent in a matched giving donation of £500 from the Bank of Scotland in relation to a 65mile walk.

In Memory of

Laura Fox

Katie Milldown took part in the London to Paris Cycle and raised £3,264.25.

In Memory of

Jake Gallagher

Caroline Pollard at Dame Alice Owen’s School sent in £185.

In Memory of

Chris Bathe took part in the Southdowns Way 200-mile off-road cycle and raised £780.

• Jackie German sent in a total of £515, including £40 from Sheila and Jane Gregg; £160 from a collection box at Jackie’s

Jenny Finney

www.c-r-y.org.uk

Salena German

Our Fundraisers brother’s shop; and £115 from a collection tin. • Walkers in memory of Salena took part in the CRY Heart of London Bridges Walk 2015 and sent in additional funds, making a total raised of £610.42.

In Memory of

Chris Giles

Phillip Merritt took part in the Plymouth Half Marathon and raised £124.50.

In Memory of

Hugh Grant

Linda Grant held a fashion show and raised £4,675: “In October 2015, over 275 ladies gathered for a fashion show and afternoon tea in the Stormont Hotel, Belfast, to raise funds for CRY. Silhouette Boutique from the Belmont Road, Belfast, provided the fashion and many very generous local traders donated amazing prizes for our sealed envelope ballot. So many people donated their time to make the event possible: our models, dressers, and ticket sellers. We raised £4,765 for CRY in memory of my husband Hugh Grant.”

In Memory of

Benjamin Goldring

Sheila Goldring sent in a donation of £100.

In Memory of

Reece Goodman

Rob and Lara Goodman sent in £3,060 raised through a recent fundraising event.

In Memory of

Jason and Sandra Gott

Sam Gott sent donations of £420 received in lieu of floral tributes for her and Jason’s mum, Sandra: “My late brother Jason Gott passed away 21 years ago on 14 June 1994 to hypertrophic cardiomyopathy. My mum found great comfort from all at CRY, especially Alison Cox who helped her a lot over the years. She never got over this huge loss. My mum would buy your Christmas cards and sell them on to help raise awareness of CRY. We as a family will carry on supporting you all, for all the good work you do.”

In Memory of

Jordan Grant

• Michael and Thomas Eastham walked the Cotswold Way and raised £550. “From 19 to 25 July this year, me and my 16-year-old son, Thomas, walked the Cotswold Way, a 102-mile-long National Trail, from Chipping Campden in the north to Bath, raising money for the Jordan Grant Memorial Fund. Jordan Grant was a fit and active young man who had his whole life before him when he collapsed and died from a heart irregularity whilst on his way to his first ever Saturday job in February 2012. His parents John and Lisa gave us their full support in the charity walk through the Cotswolds area of outstanding natural beauty. “We set off in glorious sunshine from the marketplace in Chipping Campden on the Sunday morning and walked over rolling countryside to the idyllic town of Broadway and on through fields of sheep and past honey-coloured stone cottages, churches and manor houses, through the Vale of Evesham to Winchcombe, via the ruins of Hailes Abbey. Monday was the toughest day, walking past the Belas Knap Neolithic chambered tomb and up onto Cleeve Hill, with great views over Bishop’s Cleeve and Cheltenham and the Vale of Gloucester and then on to Leckhampton

Issue 68 | September to December 2015

Our Fundraisers Josh had a virus which was causing him to have heart pains. Josh raised an impressive £285.” Lindsay Baron. • Lisa Grant sent in a total of £2,630: Sunflowers Florist raised £180; Anne Riley raised £400; Eve Howard and Jo Ardern at Our Lady’s Catholic High School sent a total of £2,000; and Susan Ormsby donated £50.

In Memory of Hill, looking out over Tewkesbury Abbey towards the Malvern Hills and the Morgan car factory. Wednesday was the second toughest day, due to the distance that we needed to cover between Painswick and North Nibley. We crossed the Stroud Valley, with its woollen mills and place names made famous by Laurie Lee in his book Cider with Rosie. “Following a steep climb on Thursday morning up to the monument to William Tyndale – who translated the Bible into English – and on to another monument to Lord General Robert Somerset celebrating the victory at the Battle of Waterloo, we walked on to Petty France, near Badminton. The sun came out again on Saturday morning when we walked over the civil war battlefield at Lansdown Hill and descended into the city of Bath. We spent the rest of the weekend exploring the city, including the Roman Baths, Bath Abbey, Pulteney Bridge and going on two separate bus tours – the city tour and the skyline tour – and we would recommend the Bath buns at Sally Lunn’s tearooms near the abbey.”

Adam Green

Steve Hiscock sent in a donation of £1,000.

In Memory of

Alva Green

Julie Page sent donations of £155 received in lieu of floral tributes for her mother.

In Memory of

David Green

• Gabby Broadhurst took part in the Bognor Regis 10K and raised £985.

• Richard Baldwin took part in a sponsored walk from Preston to Blackpool and raised £695. • John and Lisa Grant sent in £1,336.40 raised in respect of Emma Rigby taking part in a sponsored walk. • Josh Baron took part in the Preston 10K and raised £285. “Josh was originally raising money for running the Manchester 10K but had to defer the run until the Preston 10K due to doctor’s orders. Josh developed chest pains a week before the Manchester run and had to have an ECG. Fortunately everything was okay and

www.c-r-y.org.uk

Our Fundraisers • Gabby Broadhurst raised £309 through taking part in the Morrisons Great North Run 2015.

In Memory of

• Dan Brookes took part in the Tewkesbury Half Marathon and raised £195. • Poppy Street sent in £1,000 from Newton Asset Management.

James Green

Alice Emmerson sent in £323.78 raised by her husband Paul growing a moustache for “Movember”: “My husband Paul Emmerson grew a moustache for Movember to support the work of CRY in memory of his brother-in-law James Green, who died suddenly whilst playing cricket at the age of 35 in 2002. James had an undiagnosed heart condition; arrhythmogenic right ventricular cardiomyopathy. Since then all the family have been screened, some family members have the condition, including James’s brother Matthew who has had a heart transplant, and two cousins who have also had heart transplants. Sadly, another cousin, Rupert, died several years before James of the then undiagnosed heart condition. Friends and family have been generous in their sponsorship and Paul has also raised awareness amongst friends of the amazing work that CRY do.”

In Memory of

Matthew Hadfield

• Andy Hunt raised £1,520 through taking part in the Prudential RideLondonSurrey 100 2015. • Oliver Tebbutt took part in a cycle from Land’s End to John O’Groats and raised £6,095.

In Memory of

James Haggerty

Jackie and Russell Haggerty sent in a donation of £3,000.

In Memory of

Harvey Hague-Armitage

Mrs R Williams sent in £259 raised through an evening of music.

In Memory of

Oliver Griffin

Joanne Matthews raised £285 through taking part in the Prudential RideLondonSurrey 100 2015.

In Memory of

Darren Hall

Kirsty Hall sent in a donation of £398.

In Memory of

Susan Pyke sent in £100 in respect of the CRY Durham Riverside Walk 2015.

Jean Hall sent in £1,900 raised through a golf event and social evening.

Joseph Grove

In Memory of

Leanne Haddrell

• James Padden took part in the Three Peaks Challenge and raised £435.

Graeme Hall

In Memory of

Joseph Halliwell

• Gill Bowen sent in a donation of £600. • Joanna and Simon Halliwell sent in

Issue 68 | September to December 2015

Our Fundraisers £1,500 from the Cheshire Freemasons: “On Sunday 11 October we were presented with a cheque for £1,500 generously donated to us from the Cheshire Freemasons at Oaklands Hall, Godley, Hyde, where we are having the next screening event in March 2016. Thank you to everyone who helped towards this wonderful donation and thank you to the Cheshire Freemasons for your kind donation.”

approximately 50 miles long; starting from Sandyford Community Fire Station in Stoke-on-Trent, before heading to Byley in Cheshire and back.

In Memory of

Shamil Hamid

The New English School in Kuwait sent in a donation of £4,291.26.

“Mark was very charismatic and extremely well respected by his friends, colleagues at Staffordshire Fire and Rescue Service and also the local cycling fraternity, not to mention cycling friends he met via social media. This meant that over 300 cyclists took part in the ride. The ride was also supported by Kristian House, a professional cyclist from JLT-Condor/One Pro Cycling, who not only donated items to help raise funds but joined cyclists on the starting line to get the ride underway. Riders of all ages and abilities took part, including Mark’s Blue Watch colleagues riding on tandems and others on Raleigh Choppers. Many riders and supporters wore something pink on the day, Mark’s favourite cycling colour!

In Memory of

Alexander Hampshire

Angela Hampshire sent donations of £1,777.05 received in lieu of floral tributes for her son.

In Memory of

Mark Hancock

• Angela Hancock sent in £610 raised through a memorial cycle ride: “A memorial cycle ride took place on Sunday 20 September 2015 in memory of Mark Hancock, who died in February 2015, aged 47. The memorial ride followed the route of Mark’s final ride on February 24, and was

www.c-r-y.org.uk

“Family and friends are thrilled that their fundraising target has been exceeded and the first CRY screening sessions have been booked for 2016. Support and kindness from local companies such as Vekta Velosport, Brian Rourke Cycles, Knights BMW Group, Nuffield Heath Fitness & Wellbeing, David’s Brasserie, Pieminister, Trentham Garden Centre, Trentham Monkey Forest, Steelite and Portmeirion promoted the sale of around 2,000 raffle tickets, which went a long way towards reaching the final fundraising amount.” • Angela Hancock sent in a total of £517.11, including £117.11 raised by the Beartown Patchworkers and Quilters; £100 raised through the Busy Minds group;

Our Fundraisers and £278 raised through a memorial bike ride. • Lara Barber sent in £100 raised through the sale of custom-made jerseys from Pro Vision. • Mark Chadwick ran Ben Nevis and raised £716. “It was called the ‘Marathon de Ben Nevis’. A 40-mile race around Ben Nevis took place on Saturday 19 September starting and finishing a few miles outside Fort William. My friends asked me to enter with them earlier in the year. My friends had both completed either ultra marathons or Iron Man contests. I hadn’t! “I started running in February/March having previously not run much more than 3 miles. I’ve gradually increased my mileage in-between calf strains, hamstring pulls and Achilles problems. We drove up on Friday – with stops it took 7.5 hours – arrived in the afternoon and registered for the race in Fort William on the Friday evening. Feet taped up, then early to bed ready for the 6:30 start. Fortunately the weather forecast was dry with little wind. There were feed stations dotted around where we could fill up with water and take in some oat bars, bananas and jelly babies. The challenge was to make it around under the 12-hour cut-off.

In Memory of

Thomas Hardman

• Francesca Saville, Bek Saville, Francesca Toniolo, Ellie Hayward, Nicola Bridge and Jess Maudsley took part in the TH96 Run and raised £539.76. • Craig Rogers took part in the TH96 Run and raised £125. • Donna Simister-Jackson took part in the TH96 Run and raised £125.

In Memory of

Josephine Harris

Joy Austin held a series of car boot sales and raised £983.05.

In Memory of

Matthew Harris

• Clive Bush sent in £1,825 raised through a bike ride: “We undertook the bike ride in aid of two charities: CRY, of course, and Finley’s Tracks, a local charity. Paul Leneghan undertook the whole journey from John O’Groats to Land’s End with John Turner and myself undertaking the middle section from Kendal to Gloucester mostly on the canal towpaths. The towpaths proved to be nearly non-existent on one section. That day was 75 miles and took 13 hours, ending up getting lost looking for our B&B in pouring rain at 11:00 at night. “As predicted the weather was kind, the low cloud cleared gradually to expose the beautiful highlands. The run felt ok, although I wasn’t expecting a river crossing at 20 miles or to be eaten alive by midges. My legs were gradually tightening up as I went around, fortunately the final five miles were largely downhill. Myself and my best friends crossed the line together. The final time was clocked at 9 hours 46 minutes. I would like to say a big, big thank you to all the kind people of Biddulph, family and friends for all their support and kind donations.”

“We had great support though with free travel on the ferry (thanks to the Isle of Man Steam Packet Company) and loan of a van from B&B Furniture, who I work for. My wife

• Lara Barber sold a Port Vale FC shirt and two cycling jerseys on eBay and raised £330.60. • Kay Porter held a Body Shop party and raised £119.30.

Issue 68 | September to December 2015

Our Fundraisers Jackie, her friend Marian, Paul’s partner Rowena and his work colleague Paul Whelan all took turns at support, arranging B&Bs and driving the van.” • Carolyn and Stanley Harris sent in £100.

In Memory of

Graham Harrison

HSBC sent a matched giving donation of £500 in respect of Judith Harrison’s Three Peaks Challenge.

In Memory of

Kevin Harrison

Chris Canning raised £333.50 through taking part in the Spartan Race.

In Memory of

David Harry

Tracy Way raised £787.58 through a sponsored head shave.

In Memory of

Jon Hayman

Marion Hayman sent in a donation of £150 for CRY core funding.

In Memory of

Ross Heffler

Elaine Randall sent in a donation of £100.

In Memory of

Dean Henderson

Deborah Anderson, David Anderson, Kristine Fairley, Natalia Whittle, Naomi Dixon, Lee Dixon, Joanne Reay, Angela Haley, Layla Wilkinson, Joshua Dixon and Lewis Dixon took part in the CRY Durham Riverside Walk 2015 and raised £110.

www.c-r-y.org.uk

In Memory of

Joe Herrington

Brad and Daniela Herrington sent in a screening donation of £306.30.

In Memory of

Ben Herriott

• Samantha Herriott took part in the Great Manchester Run with Sarah and Spencer Smith and raised £1,060.80: “The Manchester 10K went well; both me and Sarah completed the race in 1 hour 3 minutes and 20 seconds, and Sarah’s husband Spencer completed it in an amazing 38 minutes 2 seconds. The day was really good, so many good causes and charities were represented and I saw a few CRY T-shirts being worn by other runners. We have now raised over £1,000 which is far more than expected and we hope it goes towards helping other families going through similar things to us.” • Spencer Smith took part in the Great Manchester Run and sent in £620, including a matched giving donation of £500 from HSBC. • Sophie Wilks, Ashley Copeland, Dave Bolt, Aimee Hepworth, Alison Zlupko, Ben Davies, Helen Sutherland and Adam Smyth took part in the Adrenaline Rush 5K and raised £1,492, including a matched giving donation of £746 from William Hill.

In Memory of

Matthew Hesmondhalgh

• Paula Hesmondhalgh sent in a total of £1,002.91: the VMCC Bowland Run raised £40; a raffle and collection at Owd Nell’s cider festival raised £860.19; and £102.72 was donated in lieu of gifts for John’s 60th birthday.

Our Fundraisers • Andrew Richmond organised a country and westernthemed night and raised £720.75. • Barry and Paula Hesmondhalgh sent in a total of £1,188.34: the Catterall Gala raised £145; a local school raised £74; Kepple Lane Family Fun Day raised £231.50; Minimart, Myerscough, raised £23.30; Preston Industrial Plastics raised £22.48; The Brockholes Arms, Catterall, raised £5.64; Garstang Timber raised £41.26; Over Wyre Bowling League’s President’s Day raffle raised £264.16; Julie and Nick’s “Stoptober” raised £31; the Cheeki Monkeys raising awareness stand and toy sale raised £80; a display promoting screening, raffle and a “guess Ted’s birthday” game raised £270.

In Memory of

Matthew and Tom Hesmondhalgh

Paula Hesmondhalgh sent donations of £525 received in lieu of floral tributes for Matt’s granddad, Tom.

In Memory of

Robert Heyes

Rachel Kirkham sent donations of £849 received in lieu of floral tributes for her partner.

In Memory of

Richard Hill

Stephanie Henshaw took part in the Mablethorpe Half Marathon and raised £320.

In Memory of

Laura Hillier

Tony and Joan Hillier raised £942.57 at the Blisworth Canal Festival.

In Memory of

Nicola Hince

Ray Hince raised £1,271 through taking part in the Prudential RideLondon-Surrey 100 2015.

In Memory of

Tony Hogan

Patricia Hogan raised £200 from a book sale held in her office.

In Memory of

Christopher Hoggarth

• Rebecca Sharp took part in the Great Manchester Run and raised £105. • Elaine Sharp and Ian Walmsley raised £2,000 through taking part in the Keswick to Barrow Walk 2015.

In Memory of

Charlie Holden

• Helen Farrell took part in the Great Manchester Run and raised £1,736.13. • Lauren Jennings took part in the Great Manchester Run and raised £170. • Tina Stevenson took part in the Great Manchester Run and raised £640. • Diane Lees sent in a total of £410: £300 from a silent auction; £50 donation; £10 donation from the silent auction; and a £50 donation in respect of a summer party. • Lauren Hulme sent in a donation of £110: “After spending eight weeks training and getting tendonitis in my knee, running the Leeds 10K would have been more difficult than first anticipated with the weather being as hot as it was on the day. My injury started to play up at 7K and I pushed through the pain to finish the race with a time of 1 hour 15 minutes and 20 seconds. I can’t wait to do the next one in Manchester next year.”

Issue 68 | September to December 2015

Our Fundraisers In Memory of

Damian Lee Hole

• Rachel Hole took part in the Walking Pen y Fan event and raised £907: “We suffered a tragedy, losing our brother/ son Damian Lee Hole to sudden adult death syndrome. This made us as a family go for screening, where our sister was diagnosed with Brugada syndrome. We therefore as a family understand the importance of screening for families. To raise awareness as a family we decided to climb Pen y Fan Mountain which is 886m above sea level. None of us were very fit and with my sister’s heart condition, it was going to be a challenge for all of us. “We spoke about this with family and friends and decided to climb as a group, including Damian’s young niece and nephews. We were a variety of ages ranging from 7 to 61. While driving to the mountain the weather looked nice, but after starting our climb the weather changed rapidly, and the heavens opened. Down came the fog and the rain kept pouring. This never dampened our spirit, we kept going. By the time we reached the top there was no view to be seen, the only thing we could see was the plaque, showing we had reached the highest point. “We had a spot of lunch in the rain, had photos taken and started our descent. Halfway down the mountain the sun came out and the fog lifted, which meant by the time we got back to the bottom we had all dried out and were all smiling again. All in all it was an amazing day for such a worthy cause in memory of a dear loved one. A special thanks to everyone who took part: Phyllis, Amanda, Melanie, Rachel, Phil, Cameron, Connor, Caitlyn, Matthew, Darren and Paula.”

• Phyllis Hole sent in £1,000 raised in respect of a charity night.

In Memory of

Philippa Holmes

William Saunders sent in £250 raised from a recent talk given by John Holmes at his Rotary club.

In Memory of

Joseph Horkan

• Sean Horkan took part in the Sunnydown Bike Ride and raised £520. • Sean Horkan raised a total of £1,429 through taking part in the Prudential RideLondon-Surrey 100 2015.

In Memory of

Stewart Howard

• Jane Howard and Marilyn sold flags during the Tour of Britain bike ride and raised £110. • Jane Howard sent in £144 raised from the sale of blankets knitted by Jean Hinson. • Jane Howard and Angie Hammond sent in £400 raised through a stall at the Christmas lights switch-on in Thetford and sales at clubs.

In Memory of

Josh Howell

Whitney Bryce raised £140 through taking part in the Color Run.

www.c-r-y.org.uk

Our Fundraisers In Memory of

which Berkhamsted School had kindly offered, and was attended by over 200 people.

• Jennifer Milsted raised £730 through taking part in the Hackney Half Marathon.

“We’d like to thank the support of CRY in the organisation of this event, in particular Ben Robinson, who provided us with collection boxes, T-shirts, balloons and all sorts of paraphernalia which helped raise awareness of this tremendous charity. Rest easy Alex, we miss you.”

Alex Hubbard

• Nicholas Mizon raised £480 through the Isle of Wight Challenge. • Natasha Warner took part in the Isle of Wight Challenge and raised £475. • Oliver Hopkins sent in £3,173.67 raised through a memorial football tournament: “On 13 September 2015, the whole of Berkhamsted gathered together to pay tribute to Alex Hubbard, the fun-loving, beard-toting friend, brother and son that we tragically lost last Christmas. Like too many others, he suffered a fatal cardiac arrest while at home, leaving all that knew him devastated. A group of Alex’s closest friends decided to honour his memory through organising the inaugural Alex Hubbard Tournament, designed to bring the whole community together in a celebration of the joy that Alex brought to everyone he touched. It was the perfect way to remember him: playing the sport he loved, with the people he loved.

• James Bateson took part in the Grand Union Challenge and raised £1,540. • Dave Lewis took part in the Grand Union Challenge and raised £1,221. • Vanessa Longbottom took part in the Grand Union Challenge and raised £130. • Marc Davies at Sir Robert McAlpine sent in £2,000. • Robert Hubbard, Ian Spence, Hugh John Harvey and Jonathan Hedge raised £7,073 through taking part in the Prudential RideLondon-Surrey 100 2015.

In Memory of “It proved to be a fantastic event, attracting people from all over the community; from Berkhamsted School and Berkhamsted Raiders (the town’s local football team), to participants from Bath University where Alex studied. It was a testament to Alex’s wonderfully friendly nature and fierce loyalty that so many people attended from all walks of his life. The event was played on Kitcheners Fields

Paul Hubbard

Jackie Hill at Wincanton sent in a donation of £165.

In Memory of

Stuart Hudson

Phil Haynes sent in £369 raised through a football match held at Silhill Football Club.

In Memory of

Daniel Hughes

• Susan Hughes sent in a donation of £200.

Issue 68 | September to December 2015

Our Fundraisers • Brian Adshead, Staffordshire Football Association Chief Executive, sent in a total of £1,500.

of punctures, the ride went without a hitch and was a huge success.

• Susan Hughes sent in £1,159 raised at a charity auction.

“On the evening of the 30th a charity auction had been organised by Kim, Dan’s sister, and Steve Forrest, one of Dan’s friends. Again this proved to be a huge success and a fitting end to a wonderful weekend. A raffle, hog roast, live music provided by professional musician Ryan Whitmore and 40 auction items including a signed Stoke City shirt, a wedding photography package donated by Craig Taberner and two pieces of unique original art by Ben Riley ensured a very enjoyable and keenly contested auction. One of the items was a painting by Dan’s twoyear-old niece Frankie Simcock which raised £205 on its own!

• Rolls Royce sent in a donation of £150. • The Dan Hughes Cycling Club raised £9,411.80 through cycling from Wembley Stadium to the Britannia Stadium. “Tragically, on 19 March 2015, Daniel Hughes of BignallEnd, Stoke-on-Trent, died suddenly in his sleep aged just 28 years old. Dan, as he was known, passed away without any warning – breaking the hearts of his family, friends and all the many people who had the pleasure of knowing him. In memory of Dan, 14 of his closest friends formed the Dan Hughes Cycling Club (DHCC) and cycled from Wembley Stadium, London, to the Britannia Stadium in Stoke. The purpose of the ride was to raise money for CRY, the chosen charity of Dan’s family; mum Sue, dad Dave and sister Kim.

“The riders were Dave Hickson, Andy Lester, Nath Stubbs, Jimmy Duffy, Matt Stubbs, Steve Bailey, Dave Barlow, Ade Tilstone, Alex Cotton, Dunc Smith, Ben Bowden, Nath Shaw, Mark Langley and Tom Casson. Support vehicle drivers were Steve Forrest, Craig Mason and Dave Hughes. Catering manager was Sue Hughes.” David Hughes.

“The riders set off on Saturday 29 August and cycled for eight hours covering 95 miles to the overnight stay at Kenilworth in Warwickshire. Several stops for refreshments were taken along the way; one of which was lunch in the Buckinghamshire village of Whaddon where we took over the small village green for half an hour. A night out in Kenilworth was followed by cycling the remaining 75 miles on Sunday 30 August, culminating in a lap of honour at the Britannia Stadium where a large number of family and friends had gathered to welcome the team home. Despite a few comedy falls and a couple

www.c-r-y.org.uk

In Memory of

Martin Hughes

Lindsey Tully and Team Martin took part in the Rochdale Half Marathon and raised £3,016.90: “Since our dad died suddenly on 20 August 2012 I decided I needed to do something in my dad’s memory so I set up ‘Team Martin’. We started by doing a challenging

Our Fundraisers local bike ride and over the past three years our team has gotten bigger and bigger! Two friends of mine have lost their children suddenly due to heart conditions so that’s why we decided to do it for CRY. My aim is to raise awareness and promote a healthy, happy lifestyle as well as raise funds.”

In Memory of

Matthew Hughes

Frances Griffiths sent in a donation of £100.

In Memory of

Christopher Hynd

Isabel Hynd sent in a total of £580: Christopher’s grandmother Yvonne saved up her loose change and raised £140; Riley, Rhys and Lenzi sold candy floss and raised £200; and Christopher’s aunt Rosemary Gardiner and her friend walked the West Highland Way and raised £240.

In Memory of

Christopher and Andrew Hynd

In Memory of

Jonathan James

Jason James sent in £350 donated by family members on Jonathan’s birthday.

In Memory of

Reece Jeffrey

• Lisa Jeffrey sent in screening donations of £272.39. • Adam Moore and Daniel Arnold took part in the Three Peaks Challenge and raised £1,280. “Daniel and myself completed the peaks at the weekend with 20 minutes to spare. Ben Nevis was the toughest with -20° wind chill and wind speeds of up to 80mph (oh and all the snow!) at the summit but we managed it.”

Isabel Hynd sent donations of £368 received in lieu of floral tributes for Christopher’s papa, Andrew.

In Memory of

Dave and Jenny Jennings sent in a donation of £2,200 raised through Nathan’s CRY Charity Golf Day.

Charlie Ibrahimi

• Khalil Ibrahimi raised £1,305 through a memorial golf day.

Nathan Jennings

“Mid Kent Golf Club in Gravesend were proud to host their annual CRY Charity Golf Day on

• Justin Bell took part in the Teddington to Tower Challenge and raised £1,090.

In Memory of

Camilla Irvine

• Rebecca Dale took part in Run Or Dye and raised £405. • Hebe Beardsall took part in the Edinburgh Marathon Festival and raised £426.

“From left to right: winner on the day Mark Lockwood, Dave Jennings, 2nd on the day Paul James and 3rd on the day Ian Whitehead”

Issue 68 | September to December 2015

Our Fundraisers Saturday 22 October. The event is organised by Dave and Jenny Jennings in memory of their son Nathan who died suddenly in his 20s whilst playing golf and having previously shown no signs of ill health. “As always the event was well supported by the members and this year the day raised a fantastic £2,200 for the charity. Dave and Jenny have been organising a CRY charity day for over 10 years and the total raised is now over £20,000.” Caroline Greenfield, Director of Mid Kint Golf Club.

In Memory of

all who contributed towards these two very worthwhile charities in Lucy’s memory.” Lion Julie Stapleton.

• CRY Representative Paddy Jelen collected a donation of £1,500 from the Deepings Lions Club.

• Elaine Norman took part in cycling from the highest pub to the lowest pub in England and raised £390:

Lucy Adena Jessop

“The sun was out and so were the crowds for the annual duck race held by the Deepings Lions Club on Sunday 6 September. In the event’s main race, 3,000 bright yellow ducks made their way along the river, travelling under the River Welland stone bridge, in a bid to win their sponsor a fabulous cash prize of £100. The lucky winner of that prize was Raffaele, followed by The Bell pub who won second prize of £50 and Ann Buttery who finished third winning £25.

“Raising funds for CRY to help towards screening or research because losing Lucy Jessop shocked our world so badly we wanted to help prevent other families going through the same heartache from this generally undetected problem. I cycled 190 miles in 48 hours from the highest pub above sea level, The Tan Hill Inn, Yorkshire, to the lowest pub below sea level, The Admiral Wells, Holme, Cambridgeshire. Beautiful villages and cycling part of last year’s Tour de France route, swallowing three flies and losing loads of calories saw me safely to the finish line where friends and family were waiting. I thoroughly enjoyed that ride and have plans to do it again.” • The Deepings School held several fundraising events and raised £1,878.02.

“Held alongside the main race, were three other duck races, split up into a race for the local pubs, estate agents and shops. The winners of each race were The Coach House, Beebys Estate Agents and Private Kollection. Other entertainment included stalls, bouncy castles and funfair rides in Bridge Street. Children and adults alike donned duck blowers, whistles and other duck memorabilia.

“Earlier this year we sadly lost one of our students, Lucy Jessop, to a heart-related condition and as a tribute to her our Sixth Form wanted to support Cardiac Risk in the Young. We have held several events throughout the school year such as Easter egg hunts, staff v student football matches, sponsored haircuts and a ‘Deepings Got Talent’ competition.” Mr P Smith, Head of Sixth Form.

“Deeping Lions chose the British Heart Foundation (BHF) and Cardiac Risk in the Young (CRY) as this year’s charities in memory of Lucy Jessop, an 18-year-old from the Deepings School who collapsed earlier in 2015 after suffering a cardiac arrest and sadly died. Thank you to

• Gillian Baldry took part in the Three Peaks Challenge and raised £161.

www.c-r-y.org.uk

• Mollie Smee took part in the Great Eastern Run and raised £325.

Our Fundraisers In Memory of

Paul Jevon

Jamie Caswell sent in £1,600 raised through the third Paul Jevon Golf Day.

In Memory of

Ethan Jones

• Keith Weston sent in £2,086.50 raised through a sponsored silence. • Swanley Active Retirement Association sent in £215 in respect of a talk by Keith Weston. • Keith Weston sent in a total of £905 raised through public speaking at various clubs and associations, including The Cole Court Club, Isleworth, £75; Brentford Docks Residents’ Association, £50; and Surrey Retirement Association, Ashford, £50.

“Coming up to the last 1K, we spotted our families waiting at the ‘orange colour zone’ and found our final push to get to the finish line. We had a fantastic day, the run was a lot of fun and we are so pleased to have raised such a fantastic amount for a charity very close to our hearts. Thank you so much to everyone who sent in to our page! Wherever you are Nana, we hope you are looking down on us and smiling.”

In Memory of In Memory of

Norman Jones

Mrs E Jones sent donations of £310.79 received in lieu of floral tributes for her husband.

In Memory of

Nana Jumah

Katy Broadhurst and Katie took part in the Color Run and raised £1,199.81: “We drove down to Manchester on Saturday morning with my parents, siblings and partner and had a lovely day shopping, followed by a meal and drinks in the sunshine and stayed at the Premier Inn in Prestwich. We arrived at the Etihad Stadium at 10:30 on Sunday morning where the festivities were already well under way with a sea of people in white T-shirts already warming up. As we started to queue up at the start chute the sun was blazing down and it was very hot crowded in a sea of people, but we were kept entertained by Capital FM and it wasn’t too long before we were the next wave ready to go! “Pacing ourselves we completed the first 3K fairly well, both feeling good, water in hand, clean T-shirts and faces a thing of the past. Running around the Etihad Stadium was hard, fatigue set in and Katie began to struggle, I told her we’ll continue at a slow jog as we were determined we were not going to walk one bit for Nana.

Ben Kanfiszer

• Karen Southwood sent in £1,500 raised at the John Holmes Trials: “On Sunday 18 October 2015 over 60 riders turned out to support the trial and the charity CRY. Trials is an off-road motorbike sport that attracts people of all ages, from 4 to 84! We regularly see generations of families; dads, sons, grandparents all riding around together. The aim is to ride a section, which includes manoeuvring a motorcycle around in woodlands, over large obstacles, such as tree stumps, rocks, etc. without putting your feet to the floor. Balance is essential in this sport, no high speed involved but you do have to ride 10 sections four times, so concentration is key. “Trials is a very friendly sport and although this was also a championship trial, lots of people turned up just in support of the charity. A great deal of fun was had by all and although there was an overall winner who will receive the last T-shirt, the real winner has to be you guys and the young people you support.”

“Conor (my son and Ben’s friend)”

Issue 68 | September to December 2015

Our Fundraisers

• Walkers in memory of Ben took part in the CRY Heart of London Bridges Walk 2015 and sent in an additional £160, making a total raised of £382.

In Memory of

Eleanor Rose Keeler

• Annette Keeler sent in a donation of £100. • Annette and Christopher Keeler took part in the CRY Durham Riverside Walk 2015 and raised £100.

In Memory of

Claire Keen

“Myself, Tracey Blundy, team captain, and my team consisting of Robin Blundy, Emma Wyer (Keen), Chris Smith, Jon Marsh, David Youell, Martin White, Ian White, Tracy Dalton, Kevin King, Gary Cole, Stu Smith, Martyn Collins, Mick Gardner, Nick Lord, Charlie Shelton, Gavin Grant and Rudy Gazeley, waited for the call to be prepared for the first of our three races. “The call came and we were ushered to the boat, kitted out with life jackets and all the equipment needed. We did brilliantly, winning our first race, it wasn’t long to wait for our second race call to come, and although we didn’t win this time, we made a better time of 0:57:03, this being our best overall time. We lost our third race, but our best time put us in overall fifth position, with the winning team of the day being only 33 seconds faster than the Island Warriors. We were also amazed to learn that of the £5,000 raised by the whole event, the Island Warriors had raised half of the total, which won the team an award for most money raised for their charity.

• Emma Wyer sent in £500.25 on behalf of her aunt, who requested donations in lieu of gifts at her 80th birthday tea party. • Tracey Blundey and Chris Smith sent in a total of £2,500.55 raised through the Albert Village Dragon Boat Race. “On Sunday 6 September 2015, the Island Warriors were out on the water raising money and awareness for Cardiac Risk in the Young in memory of Claire Keen. I had put together a team of 18 to enter into the annual Albert Village Dragon Boat Race; we had named the team ‘Island Warriors’ with the theme of Vikings.

“We had a great day of fun and laughs, ending the day with a BBQ back at my home, and with that it gives me great pleasure and pride that £2,500.55 has been handed to CRY in memory of a wonderful daughter, sister, cousin and friend, Claire Keen.” Tracey Blundy.

In Memory of

Marcus “Mickey” Kent

Stephen Kent sent in a donation of £200.

www.c-r-y.org.uk

Our Fundraisers In Memory of

In Memory of

Karen Kernot organised the “Heart to Heart” charity evening and raised £2,455.

Amanda Lancaster raised £792.55 through taking part in the Chester Half Marathon.

Darren Kernot

In Memory of

Jenny Kerwood

• Claire James took part in a skydive and raised £1,763. • Martin and Elizabeth Kerwood sent in £235 raised by the Epping Forest Scottish Dancing Association.

In Memory of

James King

James King Snr sent in £1,200 raised through a Halloween night.

In Memory of

Jon Knox

Don Knox sent donations of £675.25 received in lieu of floral tributes for his son.

Anthony Lancaster

In Memory of

Robert Lancaster

• James and Margaret Lancaster sent in a donation of £1,485. • Margaret Lancaster sent in £200 raised by a shooting syndicate. • Crime writer Martin Baggoley sent in £100 raised at The Rose & Crown pub as part of the Ramsbottom Literary & Arts Festival: “On 21 November 2015, as part of the Ramsbottom Literary & Arts Festival, I gave a talk at the town’s Rose & Crown pub. Afterwards I told those present about the work of CRY, about Robert, and my friendship with his parents Margaret and Jim, which goes back to their school days. I asked for donations and within a few minutes the audience and other customers along with the landlord and landlady had put £100 in the hat.”

In Memory of

Andrew Lancastle

In Memory of

Jannik Lam

• Faye Greenwood took part in the Way of the Roses event and raised £200.17. • Walkers in memory of Jannik took part in the CRY Heart of London Bridges Walk 2015 and sent in an additional £540, making a total raised of £3,510.

• Kirsty Fraser took part in Spartan Scotland Sprint UK and raised £650. • Lisa Taylor sent in a donation of £1,090.20 raised through Charity Walk SGN. • Ashleigh Taylor, Anne, Debbie and Howard took part in the Scottish Half Marathon and raised £1,926.86.

In Memory of In Memory of

Mark Lambson

Paul Lambson took part in the Cambridge-London-Paris Cycle and raised £1,696.

Michael Land

• Dave Deaves raised £100 through taking part in a canal walk. • Ruth Cain sent in £1,634 raised at a football tournament. “On July 4 I organised a 5-a-side adult football tournament

Issue 68 | September to December 2015

Our Fundraisers and invited 16 teams to participate in competing for the Michael Land Trophy. The winners were Team Logic from Pontefract. There was also a junior competition in the morning along with state-of-the-art play area for the children. A beautician was on hand to keep the ladies occupied and the coffers were boosted by a raffle and mini auction. “We are confident that the A1 Football Factory will host a screening day in the near future. The grand total raised on the day was £1,634 with a cheque presented to CRY from A1 Football Factory.” Allen Haywood.

In Memory of

Sean Lawlan

Carly Reid took part in the 15-mile Wirral Coastal Walk with her husband and raised £415.

In Memory of “From left to right: Andy Rowley (from winners Team Logic), Louise Watling (Michael’s partner), David Leigh (representing CRY), Paul Green and Simon Fletcher (co-owners of A1 Football Factory), and Allen Haywood (organiser)”

• Christine Bodker sent in £260 raised through a tombola stall at the United Reform Church in Knottingley; Anne Broughton served tea/coffee and biscuits.

In Memory of

Michael Land and Dorothy Thorpe

Alf Thorpe sent donations of £338.62 received in lieu of floral tributes for his wife, Dot.

In Memory of

Mark Law Hing Choy

Joanne Dean sent in £9,000 raised through charity golf days in 2014 and 2015: “Every year friends and family get together for golf and a gala dinner in Bedford to celebrate the life of our very dear friend Mark Law Hing Choy, who we suddenly lost at such a young age on 20 April 2009, aged 35. We raised £9,000 to support CRY, which we are very proud of.”

www.c-r-y.org.uk

Kris Ledgard

• The staff at Davies Turner & Co, Dartford, held a dress down day and raised £188.60. • Julie Hollinshead sent in £290 raised through an ice hockey tournament. • Josh Nicklin sent in £100 raised through an ice hockey tournament.

In Memory of

Martyn Lee and Arron McDonald

Lianne McDonald took part in the Manchester 10K and raised £230.

In Memory of

Jonathan Leigh and Michael Land

Stephen Deacon raised £568.70 through taking part in the Morrisons Great North Run 2015.

Our Fundraisers In Memory of

• Philip Stevens sent in £150 raised through collection boxes.

• Mike Quirk took part in the Rat Race Crossing and raised £450.

• Victoria Lipscomb-Stevens sent in a donation of £279.50.

Adam Lewis

• Alex Humphries, Gareth Humphreys, Nathan Quale, Charlie Morris, Iain Harrison, Matt Urey and Chris Roger sent in £337 raised through the Dohers Dribblers’ fundraising. • Liz Barratt took part in the Great Manchester Run and raised £460. • Kim Lewis sent in £250 from Unilever.

In Memory of

Jamie Loncaster

• Paul Hopton sent in a donation of £100. • Graham and Jenny Loncaster sent in £104.46.

• Adam Hardman took part in a 100-mile cycle and raised £218.

• Kerry Almond took part in the North Lincolnshire Half Marathon and raised £133.10.

• Todd Ryan raised £397.25 through a 60-hour footy marathon.

• Graham Loncaster sent in a total of £2,700.39: a Co-op raffle in North Ferriby raised £90; collection tins at Co-op, North Ferriby, raised £201.18; McColl’s, Swanland, raised £184.53; Pat and Jane Wride of Swanland organised a Christmas fayre at the local village hall and raised £782; the Waitrose “Community Matters” green token collection raised £500; family donations amounted to £42.68 and various sales and other donations amounted to £900.

• Natalie Savage and Hannah Quirk took part in the Liverpool Rock ‘n’ Roll 5K and the Liverpool Half Marathon and raised £390. • Duncan Forrest took part in the South Downs 100 and raised £230. • The TeamTALE 50-Milers took part in a Liverpool to Chester bike ride and raised £2,085. • Kate Roberts took part in a triathlon and raised £345.

In Memory of

Huw Lewis

Sarah Lewis, Molly Lewis, Jane Larkin, Helen Burkett, Danielle Wykes, Helen Holcombe, Vikki Riddelsdell, Suzanne Moffat, Vicky Moffat, Kirsty Moffat and Spencer Gordon took part in the CRY Heart of London Bridges Walk 2015 and raised £775.

• Arco sent in a donation of £3,500. • South Hunsley School and Sixth Form College sent in a donation of £912.25. • Ed Scott took part in the Kilimanjaro Trek and raised £1,034.50. • Chris Huscroft at Swanland Primary School sent in £363 raised through a movie night held by their Year 5 pupils. • Lee Newsham at PDR Construction sent in £3,937.50 raised through a charity cycle ride. • Susan and Peter Loncaster sent in a donation of £100. • Amanda Rimmington at Autovision Hull sent in £100.

In Memory of

John-Paul Lipscomb-Stevens

• Philip Stevens took part in the Annapurna Base Camp Trek and sent in £3,539.48.

• Rena Downing sent in £100 raised at a Swanland coffee morning.

In Memory of

James Lovatt

Rachel McGreevy took part in the Potters ‘Arf Marathon and raised £1,078.

Issue 68 | September to December 2015

Our Fundraisers In Memory of

Martyn Luckett

• Andy Hold took part in The Big Quiz and raised £815: “Here is a picture of the winners with the trophy; unbelievably Charlotte won her own charity’s quiz. That’s me in the booth, I find people can’t throw objects quite so easily!”

“The two-day event brought 73 riders, and a lot of friends and family with them. We held two days of training and a BBQ with a live band and bar plus a very big draw. This raised an amazing £3,000 for the charity. We have a lot of loyal friends that have helped us to raise this money over the years.”

In Memory of

Aaron Lundy

John Lundy sent in total donations of £4,496.28.

In Memory of • Brenda Luckett sent in £3,000 raised through their annual motorcycle trials weekend: “We held our annual two day trials school in August in Martyn’s memory, we have been doing this event for 23 years so next year is our last year! We have raised a lot of money over these years, first of all we did it for CLIC Sargent as Martyn’s friend was poorly with cancer. Then we lost Martyn 10 years ago and we found out about CRY. We have been raising money in his memory for screening; he was a keen motorcycle trials rider himself.

John Luxford

Kevin Luxford took part in the Run4John and raised £790.07.

In Memory of

Andrew Macleod

• Murdo Macleod and Norman Campbell accepted a cheque on behalf of CRY from Maggie Thompson at the Co-operative in Stornoway for £1,058 raised in July from collection tins and a secondhand bookstall. • Jonathan Christie sent in £3,000 raised by the students of The Nicolson Institute, Stornoway, through their participation in the Youth & Philanthropy Initiative at YPI Scotland. • Dena Macleod sent in £610 collected at a one-day conference held by the Lewis Lionesses.

“I was honoured to be nominated for Community Fundraiser for my work with raising money for CRY for Martyn’s Memorial Fund to raise money for screening”

www.c-r-y.org.uk

• Kenneth Mackenzie sent in £1,741.66 in lieu of payment for the CRY screening team’s recent stay at his hotel.

Our Fundraisers • Stewart Ramsay took part in the Hebridean Cycle Challenge and raised £125. • The organisers of the Hebridean Cycle Challenge 2015 sent in a donation of £9,000. “Now in its fifth year, the Hebridean Cycle Challenge on Saturday 20 June was hugely successful. Over 100 participants took part with something for everyone – from walking the picturesque Uragha to Scaladale route; to taking part in the non-competitive charity cycle from the Creed to Scaladale (a distance of 22 miles); and for the more competitive, the 34-mile road-race from the Creed to Miavaig, followed by a challenging 11-mile off-road trail which could be mountain-biked or run.

Memorial Fund and Round Table provided awesome food to recharge all the participants, supporters and volunteers which was welcomed by all.” “The winners of the competitive race are as follows: Solo Cycle – John Neil Mitchell; Solo Cycle/Run – Christina Mackenzie; Team Cycle – Donald N Thomson and Gavin Earons; Team Cycle/Run – George Hall and Howard Maciver. “Thank you to all who took part as competitors, cyclists, walkers, supporters, volunteers, caterers and the Coastguard without whom this event would not be possible. We look forward to seeing you all again next year, we can’t wait!” Neal Ingram.

“We have been blown away by the level of commitment shown to the sports by everyone and by the level of support given in the run-up to and on the day of the event. It’s been amazing to see such a variety of experience coming along; from well-seasoned race competitors to those newer to the whole experience, new faces and old coming back to challenge themselves. We have also seen some of those who previously were charity entrants decide to further challenge themselves with the more intense road and off-road race.

• Craig Allan sent in £2,850 raised at a charity football match between the local police and fire service in Stornoway.

In Memory of

Jack Maddams and Junior Dian

“This year we had over 60 charity cyclists and walkers who took on their own personal challenges and helped to raise money for the Andrew Macleod Memorial Fund within Cardiac Risk in the Young (CRY), which is the charity supported by the Hebridean Cycle Challenge again in 2015. To top off a great day’s event the Andrew Macleod

• Extra Miles Challenges sent in £450 raised through Phil Barden and his team cycling in relay over 500 miles in three days through France and Germany. • Roger and Janet Maddams sent in a donation of £285 in respect of the Football Fightback initiative.

Issue 68 | September to December 2015

Our Fundraisers • Charlie Cole sent in £1,000 raised by the West Kent Sunday Football League and £200 raised by Dorking Wanderers FC, making a total raised of £1,200. • Sir Joseph Williamson’s Mathematical School sent in £800 raised through a charity afternoon.

In Memory of

David Maines

Louise Carter took part in the Shrewsbury Half Marathon and raised £120.

In Memory of

Marie Manhire-Clark

• Joshua Edwardes raised £650 raised through cycling 335 miles. • James Manhire, Karen Davison, Scott Macartney and Lynsey May Little raised £2,348.50 through taking part in the Bupa London 10,000 2015. • Miriam Hodgson raised £1,204.36 through taking part in the Prudential RideLondon-Surrey 100 2015. • Felicity Gibbs took part in a selfie-athon and raised £160. • Walkers in memory of Marie took part in the CRY Heart of London Bridges Walk 2015 and sent in an additional £471.20, making a total raised of £2,631.20.

In Memory of

Leon Ashley Manners

Julie Hatton sent in a donation of £120.50.

In Memory of

Alun Mardon

Ralph Mardon sent in £375 raised at a memorial rugby match between Wattstown RFC and Glynloch RFC: “Alun Mardon was such a wonderful, funny, loving and charming young man. He always had a huge grin on his

www.c-r-y.org.uk

face and would light up every room he entered. Tragically on 14 April 2007 while playing rugby for his local team Wattstown RFC, Alun, aged only 24, suddenly passed away in front of distraught friends and family. Every year Wattstown RFC and Alun’s family get together and arrange a rugby match in memory of Alun, the whole community pulls together to remember the well-loved gentleman and money is raised for charity. “As always 2015 was no exception, £375 was raised from selling programmes on the field gate and selling raffle tickets. Wattstown RFC hosted a rugby match between themselves and Glyncoch RFC, a number of the Wattstown players played alongside Alun the day he died. Wattstown won the match this year and as always Ralph Mardon, Alun’s dad, presented Alun’s memorial cup to the winners’ captain.” Bethany.

In Memory of

Ollie Marsden

Ryan Keen took part in the Bristol and Bath Marathon and raised £2,330.

In Memory of

Lewis Marsh

• Gill Weston sent in screening donations of £120. • Chris Key sent in £6,804.32 raised through the “Les Misérables vs Phantom of the Opera – The Hat-trick” charity football match.

In Memory of

John Marshall

Maureen Marshall sent in a total of £2,350: members of Skelmersdale Athletic Football Club raised £2,000; collection boxes at Edge Hill University raised £250; and Marie Court School raised £100.

Our Fundraisers In Memory of

Gary Martin

Maggie Whitlock raised £860 through a craft fair.

In Memory of

Dean Mason

• Gwenfair Mason sent in £150 raised from the collection at the 30year anniversary church service for the Camrose Vintage Working Day.

association at Dundee and Angus College. • Wanda Wilson raised £650 through walking the South Downs Way. • Fiona Robertson raised £680 through walking the South Downs Way. • Darryl Gowans raised £305 through climbing Ben Nevis. • Blair Mudie raised £300.64 through climbing Ben Nevis.

• The Committee of Camrose Vintage Working Day raised £600 at their annual show.

In Memory of

• Dean’s cousin Jack celebrated his 30th birthday and sent in £840 donated in lieu of gifts.

• Louis Martin and Pete McCarthy took part in a London triathlon and raised £1,049.64.

• Gwenfair Mason sent in £755 raised by Lok, Jenny and the staff of the Dragon Palace Chinese restaurant who took part in the annual Tenby 10K. • Gwenfair Mason sent in £4,220 raised from the annual Irish/Welsh tractor run. • Gwenfair and Alun Mason sent in a donation of £250 raised by the members and friends of the church at Molleston.

Amanda McCarthy

• Pete McCarthy, Evelyn Kalmar, Richard Kalmar, Karen McCarthy, Jim McCarthy, Sean McCarthy, Michael McCarthy, Joan McCarthy, Pete Cleary, Dave Bentley, Michelle Hampson, June Brogan and Paul Brogan took part in the CRY Heart of London Bridges Walk 2015 and raised £425.

In Memory of

Allyn McCluskie

In Memory of

Daniel Matthews

Stephanie Egan raised £505 through taking part in the Morrisons Great North Run 2015.

Janet Blandford sent in a donation of £406.

In Memory of

Greg McFarlane

In Memory of

Claire Mayger

Alan Mayger raised £1,240 through taking part in the Prudential RideLondon-Surrey 100 2015.

In Memory of

Pete McAvoy

• Asta Crombie sent in a donation of £202.80. • Richard Hall took part in the Great Actuarial Movember Moustache Grow and raised £2,355.

In Memory of

Gareth McGeoghegan

• Marc Jamieson took part in the Tough Mudder and raised £650.

• Adam Cordingley sent in £1,648.21 raised through taking part in the Manchester 10K:

• Gillian Scott sent in £100 from the staff

“There were 10 people running the Manchester 10K in

Issue 68 | September to December 2015

Our Fundraisers memory of Gareth McGeoghegan: myself, Alex Jay, Mike Jay, Paul Jay, Adam Riley, Dave Wood, Craig Bryant, Jamie Norton, Lucy Cordingley and Vic Walker. “We all had a great day, the sun was out and we were all excited about the run. Started off meeting at Stockport train station then heading into Manchester to enjoy the atmosphere. For most of them this was their first Manchester 10K, myself and Alex ran last year. We had decided at the start that it wasn’t about a fast time, we just wanted to run it for Gaz and raise as much awareness and money for CRY as possible. The boys all completed the run in around 50mins and the two girls finished in just over an hour.

In Memory of

Stuart McGrady

• Ian McGrady sent in £500 raised by Stuart’s football team, Maybole Juniors, from holding a collection and organising a big band event. • Anne Lyons sent in a donation of £100.

In Memory of

Stephanie McLean

• David Jones sent in a donation of £100. • Lesley McLean, Joanna McLean, Katie McLean, Pete Kirby, Mary Kinsley, Hannah Tobin, Daniel Reilly, Aoife Garrigan, Kate Fagleman, Caroline Sawyer, Sarah Carter, Tom Muchell, Kayleigh Dunn, Dale Tabbitt, Jon Davies, Alex Matthews, Gemma Pearson, David Williams, Mitesh Patel, Lisa Kelly, Claudia Nita, Peter Mehtar, Divya Manian, Tom Garnell, Laura Mackin and Nick Mather took part in the CRY Heart of London Bridges Walk 2015 and raised £1,105.

In Memory of “From the lads that ran the Manchester 10K, myself, Alex Jay and Mike Jay will also be running the Birmingham Half Marathon in October. Hoping to raise more awareness and funds for this great charity.” Adam Cordingley. • Emma Seaton took part in the Color Run and raised £125. • Nina Briggs took part in the Edinburgh Marathon Festival and raised £925.30. • Leanne Clegg took part in the Manchester Color Run and raised £810. • Jane Garner took part in the Manchester Color Run and raised £130. • Helen Jackson took part in the Manchester Color Run and raised £155. • Michelle Macartney took part in the Manchester Color Run and raised £557. • Rachel Wallace took part in the Manchester Color Run and raised £373.37.

www.c-r-y.org.uk

Simon McNamara

Mike McNamara sent in £450 raised at a cricket match organised by Simon’s brother Jonny and Matt Pilling.

In Memory of

Philip Meaney

• Kyle O’Hanlon took part in the Five Peak Challenge and raised £1,683.97. • Stephanie Meaney raised £920 through taking part in the Prudential RideLondon-Surrey 100 2015.

In Memory of

Luke Meekings

Sue Meekings walked seven miles over the South Downs and raised £300: “On Saturday 20 June 2015, friends and

Our Fundraisers family of Luke Meekings gathered together to remember Luke, who died seven years before on 24 June 2008. We met at Whiteways car park and set off on the South Downs Way on a really hot day. Everyone did well to complete the approximately seven miles. A very well done to Luke’s nephew and niece Noah (8) and Molly (6) who managed the whole way. Everyone then enjoyed a wellearned BBQ, followed by a balloon release for Luke.”

In Memory of

John Millar

• Kirsty MacMillan sent in a total of £777.44, including screening donations of £248.14. • Maureen Hulbert took part in Tough Mudder Scotland and raised £248.33.

In Memory of

Karly Missing

Jade Missing sent in a donation of £150.

In Memory of

Sean and Brenda Molloy

Agnes Molloy sent in a donation of £1,000 in memory of her son, Sean, and daughter, Brenda.

In Memory of

Ian Merchant

Dennis and Barbara Merchant sent in £150 raised from a collection box.

In Memory of

Florence Moore

Carolyn Wood sent in £250 donated in lieu of gifts at her son’s birthday party.

In Memory of

Josh Merrick

Liesl Flaherty took part in the Manchester Color Run and raised £205.

In Memory of

Jonathan Morgan

Sue Ainsworth sent in a total of £2,958.50, including £395 raised through her Egton Gallon event.

Richard Merriman

• Nicola Merriman took part in a charity walk/run and raised £147.50. • Emily Simmons took part in the London to Brighton Challenge and raised £730.

In Memory of

Keith Middlemast

Alan Middlemast raised £415 through taking part in the Morrisons Great North Run 2015.

In Memory of

Tom Morgan

Ian Jackson raised £1,010 through walking the Pennine Way.

In Memory of

Levon Morland

Jeff Morland sent in £100 collected by Pat Swainston.

Issue 68 | September to December 2015

Our Fundraisers In Memory of

Owen Morris

• Judith Miller sent in £2,920 raised through the Remembering Owen Summer Ball. “In September 2015 the family and friends of Owen Morris, a 13-year-old boy who died suddenly in 2013, organised a summer ball at Cardiff Golf Club to raise funds for CRY. The night was a huge success with delicious food, drink and dancing late into the night to a local band, Jammie and The Dodgers. “There was a raffle with over 40 prizes kindly donated by the local community and an auction which included prizes such as a rugby shirt and ball signed by the Welsh rugby squad together with a football shirt signed by the Crystal Palace team.” Remembering Owen Fundraising Committee.

last November and was discovered to have a massive hole in his heart which he was born with but it had never been detected. He underwent surgery at the Bristol children’s hospital and is now recovering at home. This has made everyone even more determined to continue to raise funds for CRY.” Judith Miller. • Chris Vinestock took part Owen’s Ride and raised £310.50. • Stephen Bourne-Smith took part in Owen’s Ride and raised £135. • Andrew Richards took part in Owen’s Ride and raised £280. • Kirsten Ellis took part in Owen’s Ride and raised £350. • Rhiannon Jones took part in Owen’s Ride and raised £380. • Izzy Stacey took part in Owen’s Ride and raised £135. • Bev Sulston took part in a skydive and raised £357.

In Memory of

Owen Morris and Timothy Penn

• Roger Morris raised £3,007 through taking part in Owen’s Ride. “We had a fantastic weekend and 116 riders (adults and children) completed the 110 very hilly miles to Brecon and back with an overnight stay in a campsite. The weather was very kind to us on Saturday but at midday on Sunday the heavens opened and the storm was so bad, with thunder and lightning, we did actually have a discussion about whether we should call it off. “However after a couple of hours the storm passed and everyone dried off and ended up in Cardiff High School again where we entered to rapturous applause from a large audience. As I am sure you can imagine it was a very emotional weekend with real highs and some real lows. Everyone was determined to make it a success for Owen and his family again. “There was also a very poignant moment when Owen’s closest friend Huw’s dad joined the ride from Cardiff to Merthyr on day 1. Huw attended a CRY screening session

www.c-r-y.org.uk

• Malcolm Capper raised £420 through taking part in Owen’s Ride. • Caitlyn Capper raised £167 through taking part in Owen’s Ride.

In Memory of

Luke Morton

• Suzanne Morton sent in a total of £2,582.52: Karen Grice raised £600 through a charity day held at her house; the Money Makers charity shop raised £300; the Rotary Club of Kirkby-in-Ashfield raised £550 through a charity concert held at St Wilfrid’s Church; and £1,132.52 through a charity head shave and body wax: “Throughout the day we had an awareness stall in our local Wetherspoons, The Regent, and sold raffle tickets. At 6:30pm we began the head shave and at 6:40pm ALL MY HAIR WAS GONE!!! I would like to thank all those

Our Fundraisers matched giving donation of £500 in respect of Adam Hopewood’s fundraising. • Sherry Daniels took part in the Three Peaks Challenge and raised £170. • Hugh Binns took part in the Three Peaks Challenge and raised £532.

involved with the event but special thanks go to Nicola Burgess for shaving her head too, Joe Tutty for his body wax and Jack Burrows for his body wax. Thanks also to Danny Richardson of Hair Emporium for coming along to undertake the head shaves and Linda Smith from Sutton Community College for the body waxes. Lastly thanks go to all the staff at The Regent for their absolutely fantastic support!

In Memory of

Claire Mounsey

Ray and Donna Richards sent in £230 raised by Holman Sports Club from a charity raffle.

In Memory of

Paul Mulford

Mark Heath cycled the length of Portugal and raised £375.

In Memory of

Andrew Murch

“Second in the pictures is a fundraising band and choir concert held in June this year to celebrate Luke’s birthday. Luke would have been 23 years old and this concert was a fitting tribute to him and his love of music. Thanks go to Kirkby-in-Ashfield Rotary Club for organising the event, St Wilfrid’s Church for being host, Newstead Brass Band and Ashfield District Council Workplace Choir. Special thanks also go to Philip Hurt for arranging the whole night.” • Gary Bird took part in 13 marathons and raised £391.

• Ashleigh Campbell took part in the Edinbugh Half Marathon and raised £369.81. • The Rotary Club of Pitlochry sent in a donation of £500. • Richard Pearson sent in £500 raised through entry donations for the Aberfeldy Triathlon Live Active event. • Mr S McNeish sent in £1,000 from Aberfeldy Rotary Club to mark CRY’s status as one of four charities being supported by the Highland Perthshire Marathon.

In Memory of

David Moss

• Dawn Moss sent in a total of £2,954.89, including £2,116.09 raised through various events. • Hugh Binns took part in the Three Peaks Challenge and raised £532. • The Care and Share Team, Siemens, sent in a

Issue 68 | September to December 2015

Our Fundraisers

• Ally Moncrieff at Macnaughtons of Pitlochry sent in a total of £238 raised through collection boxes at the shop.

“20 October 2015: Bethany’s parents held an awareness raising campaign at The Springs Health Centre to coincide with the flu campaign and raised £482.26.

• Kelly and Samantha Leighton took part in the Highland Perthshire Half Marathon and raised £180.

“30 October 2015: Halloween was always a favourite time of year for Bethany and her family. Bethany’s friends organised a Halloween party in her memory which was attended by lots of Bethany’s friends and family. They raised a fantastic £378.80.

• Marion Chalmers sent in £722.47 from the Dunkeld & District Strathspey & Reel Society raised at a concert in Aberfeldy.

In Memory of

Bethany Mycroft

Amanda and Adrian Topp held various fundraising events and sent in a total of £7,960: “Since Bethany’s memorial fund was established in August 2015 we have been able to provisionally book two ECG screening events for March 2017 and we are busy fundraising to be able to organise a third ECG screening event.

“15–16 November 2015: To coincide with CRY awareness week approaching Bethany’s family and friends spent the weekend raising awareness at a Dobbies Garden World and raised £548.72.”

In Memory of

Pardeep Nagra

Resham Nagra sent in a total of £660: Waitrose, Wolverhampton, raised £510; Dudley Building Society raised £100; and Wednesfield Community raised £50. “12 September 2015: Our first fundraising event was held at Clowne Gala and we raised £1,345.23. “26 September 2015: Bethany’s school friends organised a fancy-dress-themed sponsored walk around Rother Valley Country Park. They were joined by Bethany’s family members. They raised a fantastic £937.15.

www.c-r-y.org.uk

In Memory of

Daniel Newman

Lauren Gold sent in £16,926 raised through various fundraising events.

Our Fundraisers In Memory of

Ben Newton

Kirsty Smith raised £400.15 through taking part in a skydive.

In Memory of

Kerry-Anne Offord

Gary Horn took part in the CRY Football Fives event and raised £490.

In Memory of

Juma Ngqobongwana

Andrew Thrower sent in £700 raised through a Manchester summer basketball tournament.

In Memory of

James Nicholas

Carmel College sent in a donation of £1,326.14.

Robert O’Kane

Craig Dingwall organised a charity evening at the Glencairn Club and raised £1,095.57.

In Memory of

John Oliver

Jean Gillespie took part in Ironman Austria and raised £955.

In Memory of

David Nisbet

Alaysia Nisbet raised £651 through the 10K Bling Blazer event.

Gregory Palmer

Janet Palmer sent in a donation of £1,000.

In Memory of In Memory of

Barry Nivett

Jenny Boag raised £790 through taking part in the Sure Run to the Beat 2015 and Running4Women Windsor 10K 2015.

Robert Palmer

Mr Palmer sent donations of £345 received in lieu of floral tributes for his son.

In Memory of

Andrew Parker

In Memory of

Jason Nixon

Vicky Nixon and Richard Theaker took part in the CRY Heart of London Bridges Walk 2015 and raised £535.

Ryan Parker took part in the Southampton Half Marathon and raised £105.

In Memory of

Joe Parkinson

In Memory of

Peter Norman

Maureen Fletcher sent in a donation of £100.

• Zoe Bridson sent in £265 donated by friends and family in lieu of gifts for her parents’ wedding anniversary: “My mum and dad celebrated their 30th wedding anniversary on August 10, and held a house party on the 15th. They decided they did not want cards or

Issue 68 | September to December 2015

Our Fundraisers In Memory of

Chris Parr

Elliott Fowler raised £1,217 in respect of sponsorship from the Trekking the Snowdon Horse Shoe event.

In Memory of “My mum and dad (Gill and Chris) with Joe’s mum and dad (Diane and Joey Parkinson)”

presents and instead preferred cash donations. In total we raised £530 which was split between two charities; Marie Curie in memory of my great auntie who passed away recently, and CRY in memory of our friend Joe Parkinson. “Joe was only 21 years old when he tragically passed away on 1 February 2012, whilst out on a jog. He was fit and healthy his whole life so his death hit everyone hard, especially his family and close friends. Joe was one in a million and a party animal, you only had to meet him for five minutes and you never forgot him, everyone has such good memories of him. He is missed every day.”

Philip Parr

Joanne Parr took part in the Edinburgh Marathon and raised £706.40.

In Memory of

Kayur and Renuka Patel

Heena Patel sent donations of £401 in lieu of floral tributes for her mother, Renuka.

In Memory of

James Paterson

• Michael Paterson sent in £200 in lieu of a gift to celebrate Amanda and Jay’s wedding. • James Westby sent in £100 in lieu of a gift to celebrate Amanda and Jay’s wedding.

“Me and my boyfriend (Dave) who was Joe’s best friend”

• Mr J and Mrs D Parkinson sent in a donation of £125.

In Memory of

Kevin Paterson

Justin Wignall sent in £100 in lieu of a gift to celebrate Gareth Hellewell and Katie Sharples’s wedding.

Andrew Parr

Ruth Lowe sent in a total of £1,922.55, including £50 from Mr and Mrs Marshall; £646 raised through a collection at Preston North End Football Club; and £623 raised through a Christmas quiz night at the Ingol Golf Club:

In Memory of

“Over 80 people attended. There were plenty of challenging quiz questions, a fish and chip supper, guess the name of the Christmas dog and a Christmas-themed raffle. A good time was had by all.”

• Fran Williams at Moorepay sent in £150 in memory of their friend and colleague.

www.c-r-y.org.uk

Andrew Patterson

• Joan and Stuart Patterson sent in total donations of £2,010 from work colleagues past and present, the Bernard and Brackenridge families, and themselves.

Our Fundraisers In Memory of

James Patrick Patterson

Kelvin Wilson raised £2,090 through a charity golf day.

In Memory of

Michael Patterson

Eileen and Kevin Patterson sent in a donation of £734.88 raised by Michael’s friends.

In Memory of

Jenni and David Paul

In Memory of

Matthew Pearson

Sherry Pearson sent in £340 and Grace Williamson sent in £270 raised through Mark, Grace and Lewis’s skydive at the Sibson Aerodrome, making a total raised of £610. “It was a lovely sunny day and we were supported by lots of family and friends who came along to watch us. After registration we had a debriefing, and met the guys who were going to jump with us in tandem. Everyone was really kind and friendly, they talked us through everything and put us at ease. It was a fabulous and amazing experience for us all and something we will remember for a very long time and done for a really worthy cause.” Mark, Grace and Lewis.

• David Baptie sent in £2,164.63 raised through the Edinburgh Kiltwalk. • Laura Wilson took part in the Edinburgh Night Ride and raised £191. • Gordon and Helen Paul sent in £1,300 raised at the Mortonhall Golf Club. • Gordon Paul, Gary Queen, Niall Fogarty and Andy Crinson raised £6,469.87 through taking part in the Prudential RideLondon-Surrey 100 2015. • Graham Reed and Julie Clarkson raised £1,640 through taking part in the Morrisons Great North Run 2015. • Emma Stephenson and Isabel Marriage took part in the Virgin Money London Marathon 2015 and raised a further £1,032, making a total raised of £5,276.59.

In Memory of

James Pettifer

• Dr Vijayanathan sent in £700 on behalf of his company, G-View. • Bernie Hennah sent in £1,413 raised by the pupils of the Sacred Heart Language College.

In Memory of

Joe Pearce Willis

Stewart Hudson raised £620 through taking part in the Morrisons Great North Run 2015.

In Memory of

Adam and Eileen Pearmine

Charles Pearmine sent donations of £658 received in lieu of floral tributes for his aunt, Eileen.

In Memory of

Jack Phillips

Ellie McCabe, Head Girl at Royal Wootton Bassett Academy, sent in £265: “£265 has been raised through various fundraising ventures throughout the year, including ticket sales from a Kids TV-themed Sixth Form social, a staff versus students quiz and profits made from selling refreshments, as well as the events held earlier on in the year such as our Christmas social and quiz, raffle and spot-the-ball competition.

Issue 68 | September to December 2015

Our Fundraisers In Memory of

Charlotte Pitstra

Ali McCabe took part in the Buachaille Dash and raised £441.30.

In Memory of

Michael Pope

“The work of CRY has been particularly important to the students at our Sixth Form in the latter stages of our school careers following the sudden passing of Jack Phillips, one of our peers, in 2011. The work of CRY has as such made our students increasingly more aware of the need to address sudden cardiac-related deaths among young people, as well as the vital role CRY has in supporting friends and family following such a tragic loss. The students at the Sixth Form hope this donation goes some way to continuing the fantastic work of CRY.”

Mark Stratton, Michael Drabble and Michael Tubb sent in a total of £456 raised through Team Artois taking part in the Paddock Wood Half Marathon. “I ran the Paddock Wood Half Marathon with another 10 people (one person is missing from the photo, he got there late); we ran as Team Artois, Artois Utd FC being our football club and also the team that Michael Pope played for. Michael is the reason we all ran for CRY as he sadly passed away in his sleep.

In Memory of

James Phillips

• Adam Booth took part in the Great Manchester Run and raised £338.50. • Andrew Roberts, Alice Carr, Claire DaleLace, Mark Lewis, Keslyn Lewis, Richard Monk and Daniel Over took part in the Adidas Run Reigate Half Marathon and raised £2,375.

In Memory of

Rebecca Phillips

Walkers in memory of Rebecca took part in the CRY Heart of London Bridges Walk 2015 and sent in additional funds, making a total raised of £327.

“I am top left as you look at the picture, next to me is my wife, Stacey, next to her is our son, Luke, we all took part. Despite the poor weather on the day it was very enjoyable and although this was my first long distance run I plan on doing more now, hopefully a full marathon. “I finished the run in 1hr 46m which I was pleased with, I then turned around and ran back to find my wife and help her finish the run; I found her at the 10 mile mark and hopefully I helped her along to the finish line in 2hr 42m. This was a great achievement for Stacey as she has never been the most sporty person but trained hard for this run and both my son and me are very proud of her. We wore our football club shirts which also have Michael Pope’s nickname on the sleeve, ‘Popey’.” Mark Stratton.

In Memory of

Sara Pilkington

Imogen Levy raised £995 through taking part in the Sure Run to the Beat 10K 2015.

www.c-r-y.org.uk

In Memory of

Craig Daniel Powell

Elliot Donald and members of AC Pontymister FC took part in the Newport Half Marathon and raised £1,145.64:

Our Fundraisers “As members of AC Pontymister (ACP) we are used to annually helping a charity. Our first team assistant manager Mark Powell and his son Luke, an ACP player, were personally affected by the tragic loss of their son/ brother Craig in May 2008, who died on his 22nd birthday through an undetected heart condition. Many of the current players are friends of the family and were also affected by the tragedy. “Elliot Donald, Dave Cleere and Stuart Goodwin were quickly followed by Laurie Kidman, Lewis Davies, Lee Elliot, Lewis Coburn, Dan Williams and Nathan George. Then Mark Powell at a spritely age of 44 decided that he would train and take part. Unfortunately, hand-in-hand with competitive football comes injuries. First Laurie, then Dave, then Dan. This was followed by late withdrawals from Mark and Stuart. Last minute replacements were needed. Into the fray stepped Connor Dimmick, Lewis Pontin and Stuart George.

In Memory of

Robert Poysor

Diane and Thomas Tolley organised a car boot sale and raised £300.

In Memory of

Bobby Puri

Neenu Puri, Anju Susan Pal, Surish Pal and Jaggs Sanshu took part in the CRY Heart of London Bridges Walk 2015 and raised £315.

In Memory of

Roger Pyatt

• Sarah Humphreys raised £2,275.93 through taking part in the Nuclear Rush event. • Ed Thwaites took part in the Dublin Half Ironman 2015 and raised £2,792.97.

In Memory of

Stuart and Eileen Pybus

“After a gruelling race with a head wind and light rain for most of it, our weary legs got us back to Rodney Parade to complete the race in front of supporters as far as the eye could see. Seeing the support and the finish line was an awe-inspiring sight, but as we got closer the horrifying reality dawned upon us… we couldn’t just go straight to the finish line, there was another lap of Rodney Parade! The extra pace and longer stride that we all added upon entering the ground – to pretend we were fine and could feel our legs – was about to disappear and the true extent of our efforts show. The extra unexpected lap did little to enhance our disguise as longdistance runners but it did show our determination and drive to succeed no matter what. “At the end, legs shaking, smiles gone, we all got together and wearily congratulated one another. We had done it. Connor had come in first out of the group at 1:38:37 with the last coming in at 2:10. It was a tremendous effort with great publicity for CRY.”

Joan and Gerry sent donations of £410 received in lieu of floral tributes for Stuart’s grandmother, Eileen.

In Memory of

Brent Pye

Les Pye sent donations of £330 recieved in lieu of floral tributes for Brent.

In Memory of

Anthony James Rankin

Leeann Longstaff raised £905 through taking part in the Edinburgh Marathon.

In Memory of

Charlotte Rawlings

Derek Smith sent in £1,230 raised through various events held at The Old Barn Club.

Issue 68 | September to December 2015

Our Fundraisers In Memory of

Ed Reading

Sean Reading and Phil George raised £2,037.37 through the “League Edstreme” Fratton Park charity pitch day on 8 May 2014 in memory of Sean’s brother: “Through our second charity pitch day, with help from our event sponsors Holman Reading Partnership and Helyer Davies Architects, we were able to bring Portsmouth Football Club fans the chance to grace Fratton Park. We worked with Portsmouth Football Club for over a year in order to secure Fratton Park for two 11-a-side matches which members of the public could bid to take part in.”

“The B&Q Eastleigh 10K Run went very well. Over 2,600 runners then two children’s races. “Mims Davies MP and Mark and Cath Davies ran in memory of our daughter Claire, raising funds for CRY to facilitate heart screenings.” • Amanda Roberts took part in the Yorkshire Three Peaks Challenge and raised £1,653.81.

In Memory of

Alex Reid

“Players who took part in this event all got a copy of their match on DVD along with pictures taken during the games and also got to keep the kits they wore on the day. Both games were close fought affairs, with the first game won by Helyer Davies Architects 5-2 against Holman Reading Partnership and the second game edged 4-3 by Cardiac Risk in the Young against League Edstreme.

• Lisa James at the University of Nottingham sent in £389.32 raised by students and staff providing physiotherapy and massage at sports events. • Hayley Sharp took part in the Great Manchester Swim and raised £605: “On July 4, I took part in the Great Manchester Swim, which is a one-mile swim around the docks at Salford Quays. I am a reasonably good swimmer and have swum many a length in swimming pools over the years, but before this event I had somewhat of an irrational fear of open water and what is lurking in the depths! I live at Salford Quays and the swim actually went right past my back garden, so I couldn’t pass up this opportunity to take part. “The start was a bit daunting – but luckily they had separated everyone out into ‘waves’ of around 300 people each at 30-minute intervals – so not all 2,500 people were starting off together. The water temperature (so I’m

Videos, photos and details of past and future events, including a recent report on BBC South News, can be found at www.leagueedstreme.com/team-edstreme

In Memory of

Claire Reed

• Graham Hunter sent in £620 in respect of the Eastleigh 10K:

www.c-r-y.org.uk

Our Fundraisers told) was 19 degrees, so pretty warm, and to be honest, after the initial shock, the water didn’t seem that cold with the wetsuit and swimming hat to protect me. I quickly got into my stroke and found my rhythm, 28 minutes and 32 seconds later I was finishing having only gulped down five mouthfuls of quay water and been hit in the neck once. Not too bad I think! “It wasn’t until afterwards – once I had drank a couple of vodka and cokes (for germ-killing purposes, of course) – that I realised my time was actually quite good, finishing 16th in my ‘orange wave’, 215th overall and the 56th fastest female. The most important part was that I raised £605 for Cardiac Risk in the Young, a charity that is very personal for me and my family after my cousin Alex Reid died in 2012 aged 16 from an undiagnosed heart condition. Thanks to all who sponsored and supported me. I’ll probably be doing this again next year as it was actually a really enjoyable day.” • Lynette Fox, her colleagues and students at the University of Nottingham City Hospital raised £1,614. “Physiotherapy and sport rehabilitation students at The University of Nottingham have been working as house cleaners, sports massage therapists and even butlers to raise vital funds.

McNamara, who accepted the money on behalf of CRY. Mike is a regional ambassador for the charity after his own son, Simon, died aged 25 from sudden cardiac death in 2008.” Emma Rayner, Media Relations Manager, University of Nottingham. • Rosalyn Barber sent in £325 raised by the staff and patients of Kiveton Park Primary Healthcare Trust through a coffee morning. • Rosalyn Barber and Tracey Stimpson raised £1,010 through taking part in the Morrisons Great North Run 2015. • Adam May raised £680 through taking part in the Morrisons Great North Run 2015.

In Memory of

Miles Reid

Emma-Jayne Bertschin and Rebecca took part in the Morrisons Great Birmingham Run and raised £595.

“The Nottingham physiotherapy and sport rehabilitation students held a charity auction of services they volunteered themselves and also asked for donations from local companies, celebrities and university staff. Alex’s mum, Heather Reid, said: ‘Since Alex passed away in 2012 I have received so much support from both colleagues and students at the Division of Physiotherapy and Rehabilitation Sciences, both emotionally and practically by raising money in support of Alex’s memory. Alex loved her life, she told us so practically every day. She was full of enthusiasm, joy and love. She made us all feel great. She would certainly be very proud of what is being achieved in her memory.’ “A cheque for £1,614 was presented to former VicePresident of the University Council and alumnus, Mike

In Memory of

Tom Reid

Katie Ward took part in the Leeds Junior Fun Run and raised £318.

In Memory of

Debbie Rendle

Sylvia Pezzack sent in a total of £975: the sale of Christmas cards raised £71, plus a donation of £49; Mr and Mrs B Stephens donated £250; Mount’s Bay Pilot Gig Club raised £140; and a fundraising and awareness day raised £465.

Issue 68 | September to December 2015

Our Fundraisers In Memory of

James Roberts

Ann Doyle took part in the Manchester 10K and raised £907: “This was my first time running the Manchester 10K. I’ve always wanted to try a race so I thought I would raise some money for CRY. I ran the race with my sister-inlaw Alison. Both of us were apprehensive and a little bit scared before the race began. The warm up was good fun and the atmosphere was great. There were a couple of others running for CRY, which was good to see.

Gibbs, Antony Jones, Richard Roy, Peter Kenny, Elena Kenny, Robert Anders, Lara Anders, Kate Kelly, Tom Kelly, Katherine Campion, Richard Campion, Sarah Jeffery, Matthew Vas, Martin Rees, Ay Lin Kho, David Rees, Helen Taylor, James Taylor, Bharath Rao, Isabel Reyes, Shaun Robinson, Karyn Robinson, Sameer Patel, Lucy Topley, Daniel Topley, Nicola Evans, Amit Sharma, Emily Hillman, Lucy Easton, Christopher Derry, Christine Gibbs, Austen Eadie-Friedmann, Helen Baus, Stefan Rivera, Nick Moonfield, Melissa Clinton, Jacqueline Persechino, Gemma Fraser, Kelly Phillips, Ashley Roberts, Clare Vas, Antony Jeffery, Lisa Jeffery, Michelle Gibbs, Chris Cooper, Patricia McCunney, Michael Browne, Phillipa Hallam, Melissa Nounai and Hannah Wooldridge took part in the CRY Heart of London Bridges Walk 2015 and raised £3,195. • Rebecca Marshall sent in a total of £6,272 in respect of various fundraising activities and donations from friends and family.

In Memory of

Thomas Rosindale

“The weather was just right for running and the spectators along the way cheered everyone along, which was great when we started to flag a bit, and the jelly babies after 9K were just what we needed to get us over the finish line. The whole day was good fun and we had a great time. We finished in 1hr 18mins. Not bad for our first-ever race. Hope to improve on this time next year.”

In Memory of

Sian Roger

• Keir Roger, Patrick Griffin, Susan Griffin, James Griffin, Anna Griffin, Kathy Griffin, John Braine, Jean Wyatt, Jo Roger, Brian Roger, Linda Kaley, Joan Braine, Martin Roger, Monika Schiffer, Emma Stanley, Robert Manners, Marie Browne, Thomas Browne, Helen Harris, Martin Harris, Dean Griffin, Emma Griffin, Dan Harrington, Rose Harrington, Pearce Harrington, Katie Browne, James Collins, Laura McDonald, Stuart McDonald, Matthew Couldridge, Niall Clinton, Colin Wordsworth, Andrew Kirby, Maria Kirby, Phil Eckardt, Lizzie Eckardt, Edel O’Shea, Robert Manners, Charlotte Ellison, Claire Wright, Hannah Pettit, Kim Watson, Matthew Roberts, Dave Cooper, Helen Harper, Anna Harper, Marisse Smaill, Maggie O’Sullivan, Brenda Hayes, Shanthi de Costa, Chris Currie, John Herlihy, Jane Philpott, Richard Boynton, Emily Boynton, Thomas Roger, Alexandra Argunova, Amanda Poole, Daniel

www.c-r-y.org.uk

Debbie Rosindale sent in £205 raised through rowing 50,000km and £15 through a sponsored walk, making a total raised of £220.

In Memory of

Stuart Ross

• Sharon Heggen raised £875 through the Lady Captain’s Day at Larne Golf Club. • Sharon Heggen sent in £701 raised through a charity golf competition at Larne Golf Club.

In Memory of

Stephen Rowan

Jennifer Mackay took part in the Edinburgh Marathon and raised £461.

In Memory of

Tom Russell

Toby Butterworth took part in the Bath Half Marathon and raised £1,183.10.

Our Fundraisers In Memory of

Craig Salmon

Joyce Salmon sent in £1,053.35 raised at screening events.

In Memory of

Demi Sharif

Sandi Long organised a movie-themed fancy dress disco for Demi’s 18th birthday and raised £850.

In Memory of

Walkers in memory of Max took part in the CRY Heart of London Bridges Walk 2015 and sent in an additional £245, making a total raised of £12,567.

Molly and Vic Shaw sent in a total of £1,300: a collection pot in Wendy’s Shop raised £252; a pub collection box raised £62; a cake raffle raised £86; and a memory day for Richard raised £900.

Max Schiller

In Memory of

Neil “Kymatik” Schuyleman

Caitriona Walsh at the Lanesborough Parents’ Association sent in £1,125 raised through a raffle at a summer festival.

In Memory of

Bryan Selwood

Mr P Selwood sent donations of £215 received in lieu of floral tributes for his son.

In Memory of

Matthew Seymour

• Nathan Cairns took part in a cycling challenge and raised £2,752.84. • Hannah Davies took part in the Copenhagen Marathon and raised £615. • Alan Tait sent in a donation of £328. • Kenny and Doreen Seymour sent in £8,255.25 raised through the Bishopton Rugby Club Ball. • Katie Leck sent in £2,921.76 raised through a charity race night. • Ian Salmon raised £1,055 through taking part in the Morrisons Great North Run 2015.

Richard Shaw

“It will soon be three years since we lost our dear son and brother Richard. We did the CRY Bridges Walk again this year, but we thought that no way would people be as generous as last year. So we decided to have a memory day for Richard, which we held in our local pub, The Three Horseshoes. We wrote lots of letters to local clubs, companies, and businesses, who all responded very well. We were also contacted by our local radio in Derby who asked if we would go in for an interview. Radio Presenter Sally Pepper met us and we told her what happened to Richard and the good work CRY are doing in the research for answers. Some people rang in who had not heard of the work CRY does and asked for information, so we thought we had helped out with other people who have suffered a loss. “The memory day started at 4pm with our friend Jim Vincent singing in the beer garden, unfortunately we had a few very heavy showers. That did not deter Richard’s friends and neighbours from turning out and the pub was full inside and out. We were selling lots of raffle tickets and the food was selling well, which was provided by our local Rotary club who donated most of the profits to us. ” Vic Shaw.

In Memory of

Neil Shea

Philip and Joshua Collett sent in £1,330 raised from a charity night to commemorate Neil’s 40th birthday.

Issue 68 | September to December 2015

Our Fundraisers In Memory of

In Memory of

Shebina Gill took part in the Great Birmingham Run and raised £128.

Jenny Smith, Andrea Troy and Caroline Petch took part in the CRY Durham Riverside Walk 2015 and raised £1,040.

Harp Shergill

In Memory of

Jack Sheriff

David Gridley raised £1,377 through taking part in the Prudential RideLondonSurrey 100 2015.

In Memory of

Madeline Siddall

• Adam Sellers took part in the Leeds Half Marathon and raised £310. • The All Saints Church, Andover, Derbyshire, organised a coffee morning and raised £385. • Gill Parker sent in £770.50 raised through the Eckington’s Got Talent event. • Eckington School sent in £432.44 raised by the pupils.

In Memory of

Ben Simpson

Christopher Gadd sent in £1,065.97 raised through an annual golf day.

In Memory of

Alex Smith

In Memory of

Aubrey Smith

• Arianna Barclay and Anne Clouston raised £655 through taking part in the Morrisons Great North Run 2015. • BlackRock International sent in £350 in respect of Yvonne Scott taking part in the Great Scottish Run Half Marathon: “The Great Scottish Run took place in Glasgow on October 4 and 5, which included five different events: the half marathon, 10K, toddler dash, Junior Great Scottish Run, and the Family Mile. Yvonne Scott challenged herself to her first half marathon, running to raise money for CRY in memory of her friend Aubrey Smith who sadly did not finish the same event in 2012. It’s fair to say it was a challenge and the head demons kicked in at about mile 9 with ‘only four to go’ but with the support of friends running alongside, and knowing family and friends were waiting at mile 12 for the final stretch, she finished in 2:18:09. Initial thoughts were ‘never again’ but as the pain subsides I suspect there will be another half booked in for next year.”

Jamie Simpson

Nick Oliver, Lou Simpson, Asa Skipp and Rob Law raised £980 through taking part in the Three Peaks Challenge.

In Memory of

Ben Smith

Helen Robinson took part in the Greater Manchester Marathon and raised £551.42.

In Memory of

Lee Smith

Sally Smith took part in Tough Mudder Yorkshire 2015 and raised £210.

www.c-r-y.org.uk

Our Fundraisers In Memory of

Lee Smith and Andrew Baker

Tanya Palmowski took part in a Tough Mudder and raised £368.50.

in the CRY Durham Riverside Walk 2015 and raised £449.50.

In Memory of

Carlo Spiotta

Teresa Nardo-Jackson raised £620.56 through taking part in Bupa London 10,000 2015.

In Memory of

Lewis Smith

Owen Smith raised £385 through a hitchhike to Morocco.

In Memory of

Robert Daniel Smith

• Linda Smith sent in a total of £1,773.60: the Langley Park Co-op collection pot raised a total of £44.30; a coffee morning organised by family raised £516.30; David Barber and the THFC Day Trippers raised £250; a car boot sale raised £363; Esh Parish Council sent in a donation of £500; MYLA sent in £70; and a further £30 was donated. • Durham County Council sent in a donation of £500. • Jordan Thompson raised £380 through taking part in the Morrisons Great North Run 2015.

In Memory of

Rupert Spurling

• George Cotterell, Lucy, Clemmy and Minnie sent in a donation of £400. • Sue Spurling sent in a donation of £1,890.

In Memory of

Phil Standing

• Kate Standing took part in the Caterham 10K Run and raised £1,480. • Matt Ellis took part in a middle-distance triathlon and raised £215. • Martin Jowitt sent in £358.33 raised through Martin and Andy’s bike ride.

• Simon Moralee raised £462 through taking part in the Morrisons Great North Run 2015.

In Memory of

• Elaine Spence and Linda Smith raised £1,741.50 through taking part in the Morrisons Great North Run 2015.

Mrs A Craig sent donations of £208.70 received in lieu of floral tributes for Kenny.

• Linda Smith, Robert Smith, Joshua Smith, Jean Spence, Elaine Spence, Jordan Thompson, Shannon Thompson, Julie Snowball, Gopi Singh, Andre James, Alison Vest, Lee Vest, Harry Vest, Jack Vest, Emma Willis, Esme Willis, Pheobe Willis, Margaret Layton, Debbie Humberstone, Donna Harle, Morgan Harle, Erin Harle, Summer Harle, Sherrie Smith, Ebony Burnside, Leighton Burnside, Sam Cadman, Donna Daggott, Kailey Daggott, Kay Finch, Colin Finch, Danielle Finch, Lily Finch, Amelia Finch, Lisa Benton, Joanne Brown, Sophie Brown, Barbara Fortune, Fiona Fortune, Susan Earnshaw, Bethany Peacock, Chloe Peacock, Paula Mollon, Keighley Harris, Catherine Wood, Rachael Snowdon, Marilyn Robinson, Holly French, Sophie Clark, Susan Clark and Rachel Hammond took part

Kenny Stephens

In Memory of

Gary Stewart

Deborah Porter sent in £2,500 raised by the Caledonian Charity Ball Committee.

In Memory of

Natalie Stewart

Cliff Stewart sent in a donation of £100.

Issue 68 | September to December 2015

Our Fundraisers In Memory of

Victoria Stockton and Lucie Proctor

Mel Root took part in the London to Brighton Challenge and raised £380.

In Memory of

• Shona Tennent-Butler, her husband and Kings Langley FC organised a six-a-side tournament and raised £1,031. • Angela Tennent-Butler sent in £500 from MEIT Associates and £100 from KPMG LLP, making a total raised of £600. • Gemma Thornley took part in the Jane Tomlinson 10K York and raised £255.

Patrick Swinson

Jamie Roles took part in the Cheltenham Challenge and raised £204.20.

In Memory of

Ryan Terry

• Eleanor Shipway sent in £200 raised by Ryan’s friends.

In Memory of

Paul Sykes

Carly Sykes-Blowers sent in £155 raised at the Paul Sykes Golf Society.

In Memory of

Faye Taylor

Angela Rodway at Fortis Living sent in a donation of £100 raised by staff.

In Memory of

Hannah Taylor

• Maureen Bull sent in a total of £318.17: a sea festival and raffle raised £177.70; The Cherries raised £68; a sale of bric-a-brac by Reedmans Florist raised £60.27; and a clothes sale raised £12.20. • Charles Bull sent in £350 raised from The Bures Scottish dancing group and a tabletop sale. • Mr Rozier took part in a 100-mile bike ride and raised £207.

In Memory of

Dale Tennent-Butler

• Camelot UK Lotteries sent in £500 in respect of Tracy Boxall’s fundraising.

www.c-r-y.org.uk

• Matthew Evans took part in the “9 in 2 Challenges” event and raised £880. • Malcolm Terry took part in the CRY Heart of London Bridges Walk 2015 and raised £685.

In Memory of

Christian Thomas

Alison and Emyr Thomas sent in £280 donated in lieu of gifts at their wedding.

In Memory of

Gareth Llywelyn Thomas and James Todd

Keith and Beverley Higson sent in a total of £780 donated in lieu of gifts at their silver wedding anniversary and the 80th birthday of a friend.

In Memory of

Jack Thomas

• June Thomas sent in a total of £2,347: the sale of CDs raised £430; Blackwood Asda raised £342; a Tom Jones tribute night raised £410; £245 was donated at a screening event; a charity night to celebrate Jack’s birthday raised £450; and GE Aircraft Engineering Services raised £470 at their staff sports day.

Our Fundraisers • The Freemasons’ Grand Charity sent in a donation of £1,000. • Jan and Dave Norris organised the London Open Taekwondo event and raised £1,000.

We managed to raise £1,300 more than last year.’” Text and images credited to Stranraer and Wigtownshire Free Press.

• The Unite Union donated £200 following a talk by Carl Thomas.

In Memory of

Jack Thompson

• Patrick McKenna sent in £3,000 raised through the Royal Mail’s fundraising.

Good, Bad and Ugly: Susan Prentice, Colin Dickson, Danny Love, Mark McFern

• Wilmington Grammar School for Boys sent in a donation of £843.95. • Francesca Ferrari raised £1,153.66 through taking part in the Three Peaks Challenge. • Dennis Holdsworth sent in £100 donated by members of the Holy Trinity Social Club senior citizens who collected their spare coins each week. • Barclays sent in a matched giving donation of £1,000 in respect of a 10K run, cycle and walk event. • Walkers in memory of Jack took part in the CRY Heart of London Bridges Walk 2015 and sent in an additional £143, making a total raised of £1,079.

Fore Brothers: Steven Dampney, Gordon Scott, Colin McDonald, Kevin Francis

In Memory of In Memory of

Oliver Thompson

Kelly Cheney took part in the Richmond Half Marathon and raised £630.

In Memory of

William Thomson

Mark McFern organised a charity golf competiton and auction at Stranraer Golf Club and raised £1,948. “Stranraer Golf Club hosted an Am-Am tournament in aid of charities Cardiac Risk in the Young (CRY) and Quarriers, with £3,797 being raised in total. The Fore Brothers won the competition. “Organiser Mark McFern said: ‘The tournament was in memory of my cousin Clarkson, who died six years ago.

Ben and Joyce Thorn

Veronica Thorn sent donations of £240 received in lieu of floral tributes for Joyce and her grandson, Ben.

In Memory of

Allan Thorpe

Caroline Metcalfe raised £645.03 through taking part in the Boat Club Half Marathon.

In Memory of

Christian Thunhurst

Nicholas Nelson sent in a donation of £100.

Issue 68 | September to December 2015

Our Fundraisers In Memory of

Scott and Mike Thurlow

• Chris Thurlow raised £1,077.50 through taking part in a tandem skydive: “The tandem skydive was to mark my 70th birthday, and in memory of my nephew Scott and brother Mike. Scott died suddenly from an undiagnosed heart condition in February 1999 at the age of 27, and his father, my brother Mike, passed away in February 2015. Mike’s heart condition was only diagnosed less than three years before he died, and he had cardiomyopathy, as did his son Scott. Thanks to the generosity of family, friends, members of the Rotary Club of Grantham Kesteven and members of the Grantham Tennis Club, a large total was raised for two very worthy causes.

In Memory of

Timothy Traylor

Derek and Pamela Traylor sent in a donation of £1,000.

In Memory of

Oliver Tucker

Alan Golton sent in a donation of £100.

In Memory of

Isabelle Tudisca

• Loredana Carter sent in a donation of £100. • Leo Tudisca sent in total donations of £940. • Fintan Canavan sent in a donation of £100. • Andrew Fisher sent in a donation of £100.

“I made the tandem skydive on my 70th birthday, 8 August 2015, during a family holiday in Portugal. I jumped from a height of 14,000ft above Portimao Airport on the Algarve, Portugal, from a Dornier 28 aircraft. Freefall lasted about one minute, during which we dropped at approximately 120mph before the chute opened and we descended for several minutes – before landing ‘on the spot’ at Portimao Airport.

• Leo and Della Tudisca sent in a donation of £953 raised by Jason Whittingham.

In Memory of

Jayden Tullett

Dawn Tullett took part in the Birmingham Color Run and raised £340.

In Memory of

Hannah Turberville

Brian Turberville sent in a total of £125, including £50 from Keith Sherman and family: “Each year Keith gives me a gift for CRY for Hannah’s fund, and he was largely responsible for more than £4,000 raised in December 2014 at our ball.” “All my family were there to watch me, and they said I was very calm (on the ground). I must admit to some apprehension as we shuffled towards the exit of the aircraft, but as we exited and dropped in freefall, it was an amazing feeling, and certainly a very special way to mark my 70th birthday. I asked my family to sponsor me instead of buying presents, and I am so pleased to have raised funds in memory of Scott and Mike.”

www.c-r-y.org.uk

In Memory of

Chloe Waddell

• Rodney Fullalove sent in a donation of £100.

Our Fundraisers • Katie Christopherson took part in the Great Manchester Run and raised £175. • Altrincham Grammar School sent in a donation of £544.31. • Fiona Waddell sent in a total of £1,285: the Timberley Boneshakers Charity Bike Ride raised £1,185; and Altrincham Methodist Church raised £100. • Andy Fardon at Hilti GB sent in a matched giving donation of £565 in respect of Ian Elliott and the Timperley Boneshakers’ fundraising efforts. • Holly Waddell raised £852.77 through taking part in the Morrisons Great North Run 2015.

In Memory of

David Wakeling

Mrs W Bateman sent donations of £174.20 received in lieu of floral tributes for her partner.

In Memory of

Tom Wall

• Christopher Wall took part in Tom’s Troopers’ Lyon to Nice 2015 Cycle Spectacular and raised £2,786.63. • Jessica Gammage took part in the Brighton Half Marathon and raised £382.46.

• Elaine Ward sent in a total of £672.66: a WI raffle raised £153; the screenings at Bramall Lane raised £484.66; and the Derbeyshire WI Chairman donated £35. • The Dronfield Lodge Freemasons sent in a donation of £250. • Alison Bearder sent in a total of £519.70: Dronfield Woodhouse well-dressing group raised £319.70; and a personal donation of £200. • HSBC sent in a matched giving donation of £500 in respect of Alison Bearder’s fundraising.

In Memory of

Alex Watley

• Joseph Riley raised £265 through taking part in the School Run event. • Val and John Watley, family and friends spent a summer’s afternoon and evening remembering Alex through a tour of a number of pubs in Winchester and raised £220.

In Memory of

David James Ward

Gary Thompson raised £477 through taking part in the Morrisons Great North Run 2015.

In Memory of

Neil Ward

• Unstone and District WI held a coffee morning and raised £150. • Norman Farmer sent in £500 raised through Holmesfield well-dressing at the Millthorpe well in July.

In Memory of

George Watson

• Marie Watson sent in a donation of £500. • Marie and Dave Watson held a celebration with family and friends to commemorate George’s 18th birthday and raised £500. • Holly Faulkner sent in £2,174.30, including a £500 donation from Claire Curley at Fulcrum Automotive, raised through The Wonky Table restaurant’s gala night for their former staff member. “I’m amazed and humbled how many people turned up for

Issue 68 | September to December 2015

Our Fundraisers this great charity, we believe the night was a success and we’re ecstatic with the current figure. We’re hoping that we’ve given people more awareness about CRY and what it can do to help them and their families.” Andy Thewliss, joint-owner of The Wonky Table. “The event took place in the form of a sit-down threecourse meal. After an emotional but informative speech from the Watson family, the night continued with live entertainment from local musicians Michael O’Connell and Matt Depres, photography by Carl Woodland and a raffle with prizes solely donated from friends of the restuarant and local businesses such as award-winning salon Alice Elizabeth, Can Can Lingerie and Selena’s Flowers.

“We are so grateful to our regular suppliers such as Zest, Derby Brewing Company and Owen Taylor’s who graciously donated a lot of food and drink towards the event and Essential Print who did all of our flyers, posters and tickets.” Holly, owner of The Wonky Table. • Marie Watson, Dave Watson, Grace Thornhill and Neil Thornhill took part in the CRY Heart of London Bridges Walk 2015 and raised £100.

In Memory of

Lily Webster

• Claire Thompson took part in the London to Brighton challenge and raised £3,377.76. • Philipa Das organised a bounceathon at the Mid Suffolk Leisure Centre in Stowmarket and raised £1,057.78: “June 19 and 20 saw a 24-hour bounceathon at the Mid Suffolk Leisure Centre in Stowmarket. This was an event organised by the trampoline coaches in memory of Lily Webster, who passed away aged 15 in January 2012. Lily bounced with us for seven years so we wanted to raise money for Lily’s memorial fund, which in turn supports CRY. “The bounceathon went amazingly well, with over 150 people attending between midday on the 19th and midday on the 20th. The idea was to keep at least one trampoline bouncing for the 24 hours. Even throughout the night, all four trampoline beds were occupied, thanks mostly to some very enthusiastic teenagers! We had the family of one of our young bouncers arrive at 3:30am and another at 4:30am. Now that’s dedication! This event really showed how our trampoline community pull together – one of the trampoline mums headed off at 7am to visit a local supermarket then returned with a tray full of bacon butties for everyone’s breakfast! This was a much appreciated gesture! “Overall, the bounceathon exceeded expectations, both in general support and in donations. The amount raised was £1,057.78. We’d like to thank everybody who supported us in any way, whether it was bouncing, donating money, donating raffle prizes, making bacon butties or keeping us going with coffee, absolutely everything helped and is greatly appreciated. I’d like to think that Lily would be proud of us! We’d also like to thank the companies who donated raffle prizes: Tesco, Asda, Morrisons, The Apex, Toni & Guy (Bury St Edmunds), Morvend, Gravity Force (Camberley), Colchester Zoo, DB Driving Lessons, MSLC and Ann Dix for the amazing cake.”

In Memory of

Melissa Watts

• Zoe Chamberlayne took part in the Big Heart Bike Ride in India and raised £1,869.12. • Clare Watts sent in £1,150 raised by the staff and visitors to The Bedford Arms public house.

www.c-r-y.org.uk

Our Fundraisers • Melanie Webster sent in a total of £900: Eve Randall donated £100; Molls and Dolls’ shop raffle raised £90; a quiz night raised £690; and Jane Little donated £20. • British Sugar sent in a donation of £250.

In Memory of

Sally Wells

April 2005. It has been 10 years now from when I lost my best friend Steve Wiggins who sadly fell asleep whilst travelling the world and never woke up. Steve was the life and soul of life itself and it was an honour to run the race in his memory. I think about Steve every day and he will never ever be forgotten. He left such a great void in everybody’s lives who had the pleasure to know him and I know he would have been the first person to volunteer for this race and would have loved every minute of it.”

• Margaret and Simon Wells raised £240 from a car boot sale. • Walkers in memory of Sally took part in the CRY Heart of London Bridges Walk 2015 and sent in an additional £450, making a total raised of £933.

In Memory of

David White

In Memory of

David Wild

Lisa Steel, Dawn Hudspith and Harry Steel took part in the CRY Durham Riverside Walk 2015 and raised £1,230.

Daniel Goatham sent in £333.45 raised at a punk gig at The Maiden’s Head in Canterbury.

In Memory of

Neil Wickers

In Memory of

Amy Williams

Irene Wickers sent in £136 raised by TV Licensing staff at India Mill, Darwen, in respect of their dress down day.

In Memory of

Stevie Wiggins

• Andrew Ashton took part in the Manchester 10K and raised £110. • Lynne Smith took part in the Manchester 10K and raised £135.

Robert Bamber, Alan Shaw and Richard Grundy took part in the Badass Mucker 3 event and raised £560: “My name is Robert Bamber and on Saturday 6 June 2015 myself, Alan Shaw and Richard Grundy took part in a 10K race with a military obstacle course thrown in. We entered the race in memory of Steve Wiggins who was sadly taken from us on 24

In Memory of

Sarah Williams

Kevin Williams sent in £485 raised by customers at the The Cuckoo Pint in Fareham.

Issue 68 | September to December 2015

Our Fundraisers In Memory of

Stuart Williams

Victoria Williams sent in a donation of £1,037.

In Memory of

Craig Wilson

Dave Benison and Micky took part in the Marathon des Sables and raised £2,514.24: “The Marathon des Sables (or MdS) is a multiday, selfsufficient running/trekking event across the Sahara Desert. In short, it is the equivalent of six marathons (260 kilometres) in six days, carrying all your own equipment and food for the week, in temperatures up to 50°C over sand dunes, mountains and salt planes… Water supply is rationed, and there are time penalties if you need medical attention for dehydration! There’s no wonder it is often referred to as the ‘toughest footrace on Earth’! “On 4 April 2015 around 1,350 runners from all over the world would arrive in the desert to compete in the event’s 30th year, and after 18 months of dedicated training and preparation, myself and best mate Micky would be amongst them! We decided that as we’re taking on such an event, we would do it for charity and what better cause than CRY in memory of our friend Craig Wilson who sadly passed away suddenly in September 2012. “The week ahead would pan out like this: day 1 – 36.2km; day 2 – 31.1km; day 3 – 36.7km; day 4 and 5 – 91.7km (the longest stage in MdS history – with a 36-hour time limit); day 6 – 42.2km (marathon stage); day 7 – 11.5km. “Without going into detail of each stage, and the variety of conditions and obstacles we met on the way, I can honestly say the MdS lives up to its reputation; it is both brutal and beautiful in equal measures. During the long runs on the dried-up river beds you feel like you’re cooking from your feet up and your head down. You don’t appear to sweat in the desert either, the dry heat and wind evaporate any sweat almost immediately leaving your skin and clothes covered in a layer of salt. During the hours in the sand dunes you gasp for air and wish the next summit

www.c-r-y.org.uk

will be the last, only to see more dunes as far as the eye can see. Then the beauty of the scenery makes up for it, the total darkness during the long night stage shows up a sky full of stars you never knew were there. “Each day we’d return to our tents which had been erected in their new location by the team of Berbers. This is recovery time, where we attempt to rehydrate with the night’s supply of water, cook our food, fix battered feet and eagerly await the delivery of emails from friends and family – printed off daily, and definitely the highlight of ‘tent life’! Out of 1,330 competitors, 95 had to abandon the race. On a personal level, all our training and preparation paid off and both Micky and I completed the challenge!

“Micky unfortunately battled with injury throughout his training, and ended up on the starting line with a fractured toe! Despite this, he still managed to finish in 970th place. I had ambitions of finishing in the top 25%, and also just managed to achieve it, with a final placing of 340. More importantly, we raised over £2,500 for CRY and hopefully a lot of awareness along the way.”

In Memory of

Lee Wilson

• Carol Wilson sent in £4,960.50 raised through memorial evening “In the Spotlight”.

Our Fundraisers • Leanne Greenhalgh sent in £100 raised by the Plymouth Old Tree Court Jobcentre. • Alistair Ellis raised £327 through taking part in the Plymouth Half Marathon.

In Memory of

Jake Wood and Austin Neve

Rupert Maitland sent in £1,030 raised through Quadrant Club membership subscriptions.

In Memory of

Sam Wright

Danielle West sent in £1,677.50 raised through a ladies’ night: “On Friday 16 October 2015, we opened the doors of the Derby Conference Centre at 7pm to over 200 ladies for our charity ladies’ night. Our guests were greeted at the door and given a delicious welcome cocktail, before making their way over to browse through our 25 stalls, offering all sorts of goodies from clothes and handbags, to make-up and beauty products, to massage and hair styling.

In Memory of

James Wood

• Gill and Daniel Horn sent in £1,150 donated in lieu of gifts at their wedding. • Broxbourne Tennis Club held their annual tennis tournament and raised £155.

In Memory of

Julian Wort

• Shirley Wort sent in a total of £685.15: Mike Twohig celebrated his 80th birthday and £484.10 was donated in lieu of gifts; Greenhill Grange Residential Home held a coffee morning organised by Melissa Twohig and raised £130; a collection box at Frome Rugby Club raised £56.46; and Chung Ying takeaway raised £14.59.

“An amazing hog roast was enjoyed by everyone, and was followed by entertainment from the incredible David Austen as Michael Bublé, who had the whole audience swooning over him as he performed to us for over an hour. There was then a raffle with over 40 great prizes to win, and music from C&E Discos kept us dancing until the early hours. A total of £1,677.50 was raised for CRY, so overall a successful evening!”

In Memory of

Michael Yendell

• The Frome Christian Fellowship sent in a donation of £500.

David Yendell took part in the Middlesbrough–Teesside Walk and raised £235.

Issue 68 | September to December 2015

Our Fundraisers In Memory of

Daniel Young

Suzanne Craig sent in £150 raised through climbing Snowdon: “From BT, Neil McAllister, Steve May, Kay Puttock, Andy Green, including our friends, families and I had a successful climb of Snowdon (Wales’s highest mountain) on Saturday 13 June. “We started our climb in the rain and as we climbed the weather got better and better. My son Callum and his friend led the team with Neil and surprisingly did not moan for the whole 5.5hrs of walking (3hrs up and 2.5 down). I was amazed by how many people were walking the Pyg Track up and Miners’ Track down, spurring each other on and chatting along the way! “We would also like to formally send our massive thanks to (and via Neil McAllister) the Lincoln Mountaineering Club who let us use their beautiful cottage in Snowdon where we resided for the weekend!” Su and the team.

General Fundraising • 3rd Upminster Beavers, Livingstone, sent in £255 raised through a sponsored fitness session.

Representative Maureen Ward with £300. • Staff and students from the Bablake School raised £3,559.31. • Steven Bailey sent in £275 raised through several events at the Marshwood Vale YFC. • Rachelle Banham organised a masquerade charity ball and raised £8,525.79: “On the 25 June 2013, Zoë Hitchcock collapsed on Oxford Street, suffering a cardiac arrest. At the time, Zoë was just 29 years old. Thankfully there were people who witnessed her collapse who started immediate CPR and “Myself with Zoë (Zoë is in red)” a London Ambulance Service cycle responder was on-scene within minutes to deliver a much needed defibrillator shock. London’s Air Ambulance then arrived and put Zoë into an induced coma at the scene using an innovative treatment to reduce the deterioration of her brain cells. Following that fateful day, Zoë has been diagnosed with a genetic heart condition, but she has made a full recovery and she now has an implantable cardioverter defibrillator (ICD) fitted, just in case her heart should stop again. Since her diagnosis, Zoë has been in contact with Cardiac Risk in the Young (CRY) who have been a great support to her and her family. “A fundraising group was formed with Zoë and her close friends, whose aim was to raise awareness of the tragic heart conditions that can affect young people and raise money. On 27 June 2015 the ‘CRY Masquerade Charity Ball’ was held at Tewinbury Farm Hotel in Hertfordshire.

• The A&R Woolf Charitable Trust sent in a donation of £500. • Acorns Nursery in Godalming raised £111.25 raised through a fancy dress and face-painting week. • Denesh Agnihotri organised an uncles vs cousins cricket match and raised £530. • Arberth Chapter, Royal Arch Masons, presented CRY

www.c-r-y.org.uk

General Fundraising “We made it! 900km, 36,000 calories burned… and the odd detour. We faced temperatures in the high 30s, hills, rain, wind, French lorry drivers, as well as an unexpected and revealing excursion through a nudist camp, all rounded off with some spectacular crashes. Our main problem was navigation; keeping the ocean on the right and heading south just didn’t seem to work out!

“It was hard work; leading up to the ball we held raffles, cake sales, you name it – anything to raise the awareness and funds. Over 150 tickets were sold for the night and a grand total of £8,525.79 was raised for CRY. So many more people are now educated of the tragedy that can hit young people and of the good work and testing that CRY carries out as a result of the ball. For us, we are fortunate that Zoë survived and can lead a relatively normal life.” • Phill Barnett raised £270 through taking part in the Sure Run to the Beat 10K 2015. • John Beech sent in £950 raised by St Helens and District Scout Association through collections at their gang show and Cub carol concert. • Michael Bergman took part in a football tournament and raised £240.

“We averaged 90 miles for six days, which as none of us were properly bike-fit was painful. For all of us the last hour of day 1 will be etched in our memory as a very low point. We didn’t get to our first overnight stop until well after 8pm with over 100 miles on the clock and some serious hills behind us. Things improved and we got fitter and faster and on our final push into Biarritz on day 6 we covered 88 miles in less than seven hours. The team spirit was great with each of us taking it in turns to go in front of our small ‘peleton’.

• Vic Bicocchi sent in a donation of £150. • Birbeck Orient FC sent in a donation of £140. • Bishop Milner Catholic College staff raised £325 through entering the dragon boat challenge at Himley in May. • The Bishop’s Hall Lodge in Watford sent in £165. • Becca Blight took part in the Plymouth Half Marathon and raised £205. • CRY Honorary President Sir Ian Botham OBE sent in £20,000 from Beefy’s Charity Foundation for the purchase of four ECG machines.

“It was wonderful to reach La Rocher de la Vierge in Biarritz where parents and siblings were waiting with an assortment of Scottish, English and Irish flags and a bottle of champagne, to the bewilderment of the locals.

• Simon Bradbury took part in the Three Peaks Challenge and raised £951.50. • Lynn Brannan raised £606.03 through bag packing. • Alex Bruce, Joseph Kelly and Nick Bennett took part in a Portsmouth to Pyrenees bike ride and sent in £9,044.69:

100

Issue 68 | September to December 2015

General Fundraising “Marcus and his friend Keith Seward (‘Mum and Dad’) were an amazing support team; cooking porridge by the roadside, distributing flapjacks and keeping us well hydrated. Domestic goddesses they were not – the van smelled like a French cheese counter yet suspiciously we had no cheese – but they kept us on track fantastically. “We couldn’t have done it without the support, good wishes and generosity of friends and family. Knowing that the charity will benefit enormously from the fantastic amount donated really kept us going. It was a week to remember and we still bear the battle scars; raw bums, weight loss and bruised bodies! But as someone said, if our efforts mean one life is saved, it was all worth it.” JoJo, Alexander and Nick. • Karen Burke sent in £190 raised from a dress down day at the National Counties Building Society. • The Campion School sent in £1,585.05 raised by Year 10 students who organised various fundraising events during the summer term. • The Care and Share Team, Siemens House, sent in a donation of £500. • Mr P Carey took part in the Arches Swindle from Birchwood Park Golf Centre and raised £167.

Forbes’ sausage rolls came in a close second, whilst Jodie Kemp’s pork pie took the bronze medal. Thank you to all the bakers for their fantastic efforts! “We also held our first Compass Associates Office Olympics! From the paper aeroplane competition in Manchester, to the egg and spoon race, round-the-world ping pong and much more at HQ. A fun day was had by all competing in teams to win the much-coveted prize of being about to leave at 3pm on a Friday afternoon. Well done to Pete Griffiths’ team who took first place on the day. Thank you to everyone at Compass who took part, had fun, and donated to these two amazing charities.” Lily Parke. • Thomas Conneely at Knight Frank sent in a donation of £100. • Stephen Cook sent in £566.60 raised through his 65th birthday celebrations. • Marion Cooke sent in a donation of £100.

• Kyle Carter took part in the Dads to Lads fundraising event and raised £365.

• Juan Corrin raised £693.50 through taking part in the Parish Walk:

• Centre Island in Liverpool sent in £123.

“Some people do marathons, some people climb mountains, but not many are stupid enough to walk around the whole of the Isle of Man – which is 85 miles – in under 24 hours! Unfortunately I am one of those stupid enough to attempt it. I thought to myself, if I am going to do this I may as well do it for a very worthy cause, and as I lost my father to a heart attack and he was a previous third place in the walk, I saw it fitting for me to raise money for CRY. The day started with a sore hip and rain but with the rain eventually subsiding so did the pain from my hip! You check in at each of the 17 parish churches with an electric dibber to tell people where you are.

• Alexandra Chary raised £679 through taking part in the Morrisons Great North Run 2015. • Paul and Sonia Chavasse sent in £150 in appreciation of a screening event they attended in July. • Compass Associates sent in £442 raised at their charity day. “On Friday 25 September we held our quarterly charity day supporting two heart health related charities; Wessex Heartbeat and CRY. Both charities were chosen by David Dunn of Specialist Services and Megan-Riley Spencer of our Care Home Division. “We held our usual bake-off in both our Portsmouth and Manchester offices with a sumptuous array of sweet and savoury goodies. The winner of the bake-off in Manchester was Laura Bloomfield with her delicious banana and chocolate chip muffins. The Portsmouth leg was hotly contested but Megan-Riley stole the show with her fabulously decorated chocolate fudge cake. Jade

www.c-r-y.org.uk

101

General Fundraising “The atmosphere is something to behold with people out in their gardens supporting you and giving you food to fuel you for the hard slog through the night ahead, which was pretty surreal but quite tranquil as you can imagine in a place like the Isle of Man. Each church I checked off one by one and before I knew it I was halfway... then three quarters of the way there, and all of a sudden at the last church which is just two miles to the finish! You end with a long two-mile walk along the prom, and it didn’t half drag, but the thought that kept me going was the incredible job this charity does everywhere and the lives it saves! Well I completed the gruelling 85 miles in 22 hours and 17 minutes and was very proud to do so. Hope this report inspires some of you to do something and raise even more money for the charity!” • Iona Coutts took part in the Bank of Scotland Great Scottish Run and raised £183.10. • Kaylee Crank took part in the CRY Out for the Girls cycle from Blackpool to Wigan and raised £505. • The Crawley Model Car Club sent in £650 in memory of their chairman’s son following the disbanding of the club. • Ann Creane sent in a donation of £500. • Robert Cuthbertson raised £1,035.03 through taking part in the Prudential RideLondon-Surrey 100 2015. • Dalry Bowling Club in Ayrshire sent in a donation of £300.

on. I managed to raise just over £700 for CRY – I hope it helps with your amazing work and best of luck for your fundraising efforts in the future.” • Sam Downs raised £100 through taking part in the Prudential RideLondon-Surrey 100 2015. • Lisa Dyson held a horse show and raised £350. • Harry Eaton took part in Walking to Ben Nevis and raised £170. • Ecclesiastical Insurance sent in £125 following a nomination from Yvette Currie. • Geraldene McElkerney sent in £600 donated in lieu of gifts at her 60th bithday party. • Hannah Evans took part in the Birmingham Colour Run and raised £117.50. • Janet Fauret sent in a donation of £100. • Richard Feil raised £1,486 through taking part in the Prudential RideLondon-Surrey 100 2015. • Niall Flannery raised £635 through taking part in the Bupa London 10,000 2015. • Callie Fox, Steph and Nat took part in a skydive and raised £1,754.50. • Ann French sent in a donation of £200.

• Matthew Davies took part in the Edinburgh Marathon and raised £1,278.49.

• Paul Frossell took part in the Three Peaks Challenge and raised £1,200.

• Aoife Dervan and Emma Sammon raised £625 through taking part in the Morrisons Great North Run 2015.

• Nicci Darlington sent in £648.44 raised by the National Citizenship Service group of the Fylde Coast YMCA over their summer 2015 programme.

• Dosthill Boys’ Club sent in £746.89 raised through the Run for Home event. • Peter Douthwaite took part in the Manchester Marathon and raised £712.79: “The run went really well and I completed it in 3 hours 53 minutes and 50 seconds. I had a great day with my parents, wife Claire, and children Hannah and Ethan cheering me

102

• Epsom Oddballs Running Club sent in a donation of £300. • Nicky Gale sent in £705.67 raised through the

Issue 68 | September to December 2015

General Fundraising Highways and Bridges BD Team climbing the O2, including a £353 matched giving donation from Parson Brinckerhoff.

• Harton Technology College sent in £250 raised through various fundraising events at the school.

• Naveen Garikapati took part in the Shrewsbury Half Marathon and raised £366.74.

• Paddy Hawthorne took part in the Leeds RAG Hitchhike to Marrakech and raised £190.

• Angela Gault sent in a donation of £1,880.

• Jon Hearnshaw raised £360 through taking part in the Windsor Half Marathon 2015.

• George Taylor Lodge sent in a donation of £476.25. • Faye Gibbon took part in the Nike 10K and raised £115. • John Glover sent in a donation of £135 made up of donations from athletes and money found and unclaimed at the Mary Peters Track in Belfast. • The Golf Shop in Lower Parkstone, Dorset, sent in £200. • James Goodwin and Olivia Hutton raised £1,635 through taking part in the Windsor Half Marathon.

• Helmores UK sent in £1,500 in respect of their email Christmas greeting. • Hempsted United sent in £175 raised at a football match. • Richard Hibbert raised £150 through selling spare vegetables from his allotment. • Michael Hill took part in the Yorkshire Tough Mudder and raised £530.

• Jemma Gosling took part in the Virgin Money London Marathon 2015 and raised £462.95.

• Councillor Nick Hodges at East Grinstead Town Council sent in £5,278, including a £200 donation from Mr and Mrs Dalton, raised during his year as East Grinstead Town Mayor.

• The Grange Senior School sent in £1,050 raised through various events throughout the year.

• Charlie Holding and Rebecca Deacon took part in the CRY Heart of London Bridges Walk 2015 and raised £335.

• Andrew Gritton raised £1,350 through taking part in the Prudential RideLondon-Surrey 100 2015.

• Tim Howes sent in £100 in respect of the SkillZNDrillZ sports camp:

• The Guildhall School of Music Lodge sent in a donation of £400.

“SkillZNDrillZ is a sports camp that runs in the school holidays, and was set up by Rob Howes and Marcus Fudge in 2011 as part of a Young Enterprise project. Since 2011, Rob and Marcus have had great success with the camp, and have used the profits to support CRY, and also to finance them throughout their A-levels. SkillZNDrillZ focuses on both individual and team sports, including tennis, football, athletics, and other team-building mini-games. The main premise behind the camp is to help children get active, and have fun at the same time. Sporting ability does not matter, anyone can come along, although it can get competitive at times!

• Brad Hackett sent in a donation of £243. • David Hamilton raised £380 through taking part in David’s Etape Loch Ness 2015 event. • Harris Primary School held various fundraising events and raised £768.85.

“Me (Tim Howes) and Callum Harvey officially took over the running of SkillZNDrillZ in the winter of

www.c-r-y.org.uk

103

General Fundraising 2014, during Year 11. We ran a week-long half-term camp in the winter term, and also a three-week-long camp in the summer holidays. Using some of the proceeds from the summer camp, we made a donation to CRY as it seemed a very worthwhile charity, and was especially relevant to us as we were the same age as many of the people being helped by the organisation.” • Deborah Hurdle, Head of English at Ballard School, New Milton, sent in £409 raised through a charity event. • Dominic Hurley cycled 3,000km in seven days and raised £214.20. • Inge-Lise celebrated her birthday and sent in £635 donated in lieu of presents. • Amanda Jarvis Doyle sent in a donation of £5,000 through her company, Stepping Stones. • Mikko Jay took part in the Great East Swim and raised £200. • Staff at the Jobcentre Plus Office, Preston Benefit Centre, sent in a donation of £100. • Libby Jones took part in the Berkhamsted Half Marathon and raised £1,075. • Malcolm Kinross took part in Ride the North 2015 and raised £1,256: “From left to right the names of our number are: Brian Poole, Jon Barron, James Henry, Gordon Christie and Malcolm Kinross.

• Paula Laud sent in £959 raised through a fashion show. • Linda Lawrie sent in £115 raised through a raffle at her Straight Lines dance class. • Joanna Little took part in the CRY Heart of London Bridges Walk 2015 and raised £200. • CRY Patron Pixie Lott raised £220 from her Ellaguru monthly acoustic night at her local pub, The Oliver Conquest, for up-and-coming acts to perform and get noticed. • Ron Lowe sent in £150 donated in lieu of gifts to celebrate Gwyneth Lowe’s 80th birthday: “Her grandson Sam had heart surgery at Great Ormond Street Hospital following a screening by CRY in 2007. He is now a fit and healthy young man of 24 and we are forever grateful to CRY for the screening and the chance that he was given to lead a normal life.” • John Lundy sent in £533.55 received at a Northern Ireland screening. • Margaret Lyon sent in £150 raised through open house lunches held every Tuesday in the Methodist Church at Corby Glen. • Mot MacDonald sent in a donation of £102.50. • Julie Martin and her mum hosted a ladies’ afternoon tea party and raised £315. • Daniel Mays took part in the Southend Half Marathon and raised £130. • Nathaniel McDonald took part in the Edinburgh Marathon and raised £2,641:

“We loved every minute of the event. The organisers did a fantastic job with everyone sorted and all we had to do was cycle, which we did. 175 miles, two days, five guys. I would have said it was pain-free but our legs and elsewhere on our bodies ensured we were aware of what we had achieved.” • Tom Knaggs took part in the Big Fun Run Manchester and raised £105.

104

“My marathon experience was once in a lifetime… quite literally the only marathon I intend to partake in. It was one of the toughest physical experiences of my life, and I am truly grateful for all the support that all my friends, family and colleagues provided me. My mother, father and fiancée all made the trip to Edinburgh to watch me run; this made such a huge difference I would later find out. “Being a rugby player I do not have the usual marathon physique; however as I got to the starting line with the other 17,000 runners I realised there is no such thing as the ideal body type and that was what was so inspiring to see. The atmosphere was electric and a sense of real excitement surrounded everyone. I ran alongside the young and old, tall and short, and even the odd CRY T-shirt too. I plodded along with the other optimistic runners and

Issue 68 | September to December 2015

General Fundraising admired the beautiful weather. I knew I was meeting my parents at the halfway mark, and I saw their smiley faces and heard their cheers and felt a new lease of energy. I felt heavy in my legs at mile 15 so had a little walk, but felt good as I was on for my target time of 4:10. “Unfortunately by mile 19 my hip had begun to give me a great deal of pain, leading me to run in a way that can be described as a ‘crab’; a half-walk/half-limp that was very painful. I took time to stretch but this provided little if any relief. I knew now that my target time was slipping away which was very painful in its own unique way. Now I had a tougher challenge: the long walk to the finish line. Upon calling my fiancée whilst continuing limping I felt further away from the finish line than I had done at any point during the race, even though every step took me closer. I knew it would take me the best part of two hours to limp back to the line and those last five miles were seeming like a marathon in itself. As my pace slowed the miles took more and more time and at mile 24 I could barely walk. “My father decided to walk out and meet me to help me walk the last few miles unknown to myself. And what a welcome surprise it was. He gave me his jacket and the pair of us very slowly walked to mile 26 where I very proudly finished the race at a time of 5:50. The whole experience was incredible and I am happy to have raised so much money for a fantastic cause. Thank you all for your support, it really did help, especially to Mum, Dad and Georgie!” • Jay McFadyen took part in an ice hockey tournament and raised £115. • Frank McGarry raised £970 through taking part in the Prudential RideLondon-Surrey 100 2015. • Frazer McGuiness, Circle Research, sent in £100 in respect of a market research project. • Marie McLaughlin took part in the Three Peaks Challenge and raised £5,240.33. • Alaina McNally took part in the Three Peaks Challenge and raised £312.80. • Phil Miller took part in a skydive and raised £310.

www.c-r-y.org.uk

• Moorpark Junior School sent in a donation of £171.55. • The children of Moss Park Junior School sent in £100 raised through various events including a Victorian day, a film day, an aspirations day and a cake sale. • The Open University collected £120 on behalf of their colleague Suzanne Hunter. • Monks Orchard Townswomen’s Guild sent in a donation of £250. • JP Morris took part in the Great Manchester Swim and raised £365. • Kerry McCarthy, Christine Cramer, Mark James and Katy Brown took part in the CRY Heart of London Bridges Walk 2015 and raised £830. • Ash Murray raised £871 through a 750-mile Inverness to London cycle ride. • Christopher Myhill raised £1,218 through his “Flamin’ June” Challenge. • Charlotte Neales took part in the MTM Walk from Palace to Palace and raised £615. • Shona O’Dwyer took part in the Brecons Challenge and raised £500. • The Oxford University Light Entertainment Society sent in a donation of £200. • Dr and Mrs Parham sent in £200. • Dipti Patel sent in £1,000 in recognition of the screening of her children following the sudden death of her husband. • Performing Arts Company, Plastersine, sent in a donation of £147.92. • Laura Perry took part in the Reading Half Marathon and raised £343. • Jacky Pickering raised £525 through taking part in a Bransdale bike ride: “I decided to do this ride for CRY as one of our friend’s brothers died aged 16, they introduced me to the charity. Our son Dan collapsed three years ago, because my husband has epilepsy the doctors went down that route of diagnosis, then after six months of tests and more collapses Dan was put on a heart monitor – his heart

105

General Fundraising had been stopping for 28 seconds at a time. He was rushed to York Hospital, then transferred to Leeds for a pacemaker fitting! He was only 26, he is doing very well now thank goodness, but we could so easily have lost him, that’s why the work CRY does is so important and should be advertised and supported.

(i.e. flat with plenty of cycle paths) and after a visit to the Menin Gate in Ypres they completed another relatively drama-free 120km cycling to arrive in Kortrijk. “The final day saw less favourable conditions (rain and cobbled hills) and after plenty of blood, sweat and tears (mainly from the support van), all were still smiling as they reached the famous Lion’s Mound in Belgium, in the knowledge that they had raised such a significant amount for three great causes and completed their challenge.” Tom Nunes.

“The ride itself was hard in places but well worth it! The Bransdale loop is a famous ride for very fit people. That was my challenge. I can’t really say much about the ride, it was what it was, but I’m very proud to have completed it. My friend Lorraine did it with me for a different charity!” • Joel Plant took part in a boxing match and raised £435.

• Louise Putterill took part in the Race to the Stones and raised £355.

• Timothy Plumb took part in the Daiathlon and raised £550.

• The Redevco Foundation sent in £5,000 following a funding request from Ms Goodall.

• Christian Preece took part in the Cholmondeley Castle Half Ironman and raised £550.

• Anna Rice took part in the Edinburgh Marathon and raised £1,060.77.

• Angus Prentice sent in £500 raised from cycling to Paris and back.

• Miranda Riches took part in the Humber Bridge Half Marathon and raised £2,901.71.

• Psigma Investment Management organised a Waterloo2Waterloo cycle and raised £2,049.96:

• Matthew Robinson raised £105 through taking part in the Windsor Half Marathon 2015.

“11 steely Psigma cyclists and three enthusiastic support van drivers took part in the Waterloo (London) to Waterloo (Belgium) bike ride in a bid to raise money for Cardiac Risk in the Young, SANDS (stillbirth and neonatal death) and Shelter from the Storm.

• Chris Rodger took part in the Cheshire Marathon and raised £150.

“Day 1 saw the Psigma peloton, made up of three expert cyclists and a group of enthusiastic lycra’d-up followers, head out of London and ride through the beautiful, but hilly, Kent countryside. After some minor dramas of one puncture, a couple of falls (same person, three times) and a bee sting, the cyclists arrived in sunny Dover and completed the 120km day’s cycling in time for a welldeserved rest on the ferry to Calais.

• The Rotary Club of Woking presented CRY Representative Graeme Attridge with a donation of £250.

“After a stopover in Calais and with the sun shining, the group set off, with the destination of Kortrijk, Belgium in their sights. Conditions were much more favourable

106

• Charlie Rogers took part in the Shewsbury Half Marathon and raised £232.51.

• Charlie Rowland and Tom Hudson took part in the Wolf Run and raised £690. • Don Russell took part in the Worcester 10K and raised £250. • Sage Publications sent in £3,500 raised through Tessa Picknett nominating CRY to receive the proceeds from

Issue 68 | September to December 2015

General Fundraising their Global Giving Week. • Tracey Sargent took part in the CRY Heart of London Bridges Walk 2015 and sent in additional funds, making a total raised of £620. • Peter Sattaur sent in £173 raised at the Cuddington Casuals CC Club seven-a-side cricket match. • Valerie Scott sent in £160 raised through a quiz night at Bloomfield Short Mat Bowls Club. • Lisa and Steve Senior sent in £451.16 raised from Steve and friend Phil Johnson taking part in the Stockport Hatters Half Marathon. • James Sesemann took part in the “100 Holes in a Day” event and raised £620. • Sheffield High School sent in a donation of £405.90. • Alison Sheppard took part in the Hackney Half Marathon and raised £670.01. • Karen Shilton sent in a donation of £200. • Malcolm Sibson sent in a donation of £100.

that her kids have, CRY have helped support the family through this tough time. “It was an overcast morning and I set off at 7:15 as it was Father’s Day and I wanted to be finished around lunchtime so I could spend the afternoon with my family. It was a well-organised event and many people were doing the 24mile route. I met some lovely people today raising money for a variety of charities. The last five miles were tough but it made me laugh as I walked along a potato field and had to try and dodge the potatoes that had been dug up by the local wildlife and snacked on. For anyone who has never done a similar event I would say go for it, it was a great way to raise money and keep fit at the same time. Feet are now having a bit of TLC!”

• David Smith sent in a donation of £150.

• Tom Sowman took part in the Jersey Marathon and raised £250.

• Gabrielle Smith took part in the Edinburgh Half Marathon and raised £881.42.

• Brenda Sprules sent in £150 in respect of a Buckingham charity cup competition.

• Jessica Smith sent in £1,744.86 raised by the Natracare Team through taking part in the Ben Nevis Challenge.

• SSP Pumps sent in a donation of £100.

• David Smyth took part in the Orwell Walk and raised £646.05: “I arrived on Sunday 21 June at the Gainsborough Sports Centre to register for the Orwell Walk. I walked the 14mile Levington Loop (there is an 18 and 24-mile option) but as this was my first event like this I thought I would do the 14 miles. A few of my work colleagues and I decided to raise money for a heart charity following the sudden death of a work colleague last year. Rammy and Shaun cycled and myself and Ruth walked. Ruth decided she would run the 14 miles as she is currently training for a marathon! In addition I know several friends’ children have been screened by CRY in the local area. I lost a dear friend at only 42 a few years ago from a heart attack with no prior warning, he left a wife and two young children. I also recently found out that a friend’s family have all been screened following a scare with a family member and have found out that there is a hereditary condition

www.c-r-y.org.uk

• St Joseph’s Catholic Church in Wealdstone, Harrow, sent in £250. • St Thomas C of E Primary School in Tunbridge Wells sent in a donation of £100. • Stone King in Bath sent in a donation of £177.37. • Andrew Strange took part in the Rockin’ the Tent event and raised £5,000. • Matthew Stuart-Douek took part in the Tough Mudder South West and raised £460. • Audrey Nice at Surrey Satellite Technology sent in £114.45 raised through the sale of a violin, cakes at a recent sailing regatta and lost and found. • Emma and Luke Surry took part in the St Albans Half Marathon and raised £748.10.

107

General Fundraising “It was tough, but my husband Luke and I have completed the 13.1 miles of the St Albans Half Marathon. Luke was fantastic and completed the course in 2hrs, I did it in 2hrs 47 minutes. Very pleased with that considering the endless hills, and the fact I started running in September as a complete beginner, with a far-fetched goal of running a half marathon in June to fundraise for CRY.

• Three’s community fund sent in £500 in respect of Adelina Johnson’s social media ban.

“June 2015 was actually the 4th anniversary of my ASD closure; I discovered I had a small hole in the heart after attending the CRY heart screening in Welwyn Garden City back in 2010 in memory of Mathew Blease. I’m so grateful to Mathew’s family and friends for fundraising for the screening, but feel sad for their tragic and unnecessary loss. I actually thought I had no symptoms of a hole in the heart. Unaware I had my daughter in 2009 with no problems. Years later, post-ASD closure and after the birth of my son in 2012, I felt compelled to fundraise for CRY to say thank you for the good work they do. So I started running. Bizarrely, I couldn’t ever run before and at school I was always picked last in PE! I realise now, back then I couldn’t actually run, it didn’t make me feel right. Now I can run, it’s amazing and don’t feel unwell at all, which is great news!

• Stephen Thurlow sent in a donation of £100.

“Even now my running is going from strength to strength, I love it in fact, and I’ve helped to form a growing local running mummies group on Facebook with 180 members. Their support has been amazing and I couldn’t have raised nearly £750 or ran the 13.1 miles without them, as well as the guidance from a fantastic running coach and brilliant encouragement from our family and friends. Best of all, my husband and I have become running buddies, although he’s far too speedy for me! So now the half marathon is over, I can finally thank CRY for literally changing my life. Luke and I aimed for £350 to potentially pay for 10 ECG tests, but we managed to double it to £750 and pay for 21 – we really couldn’t be happier!” Emma Surry.

• Wider Plan sent in £250 on behalf of their client, Informa.

• Alex Tatton took part in the Potters ‘Arf Marathon and raised £240. • John Terry sent in £116 raised through a raffle held at the Touchstone Folk Dance Club. • Andy Thompson took part in a 260-mile cycle challenge and raised £126.

108

“Adelina joined a social media ban on behalf of CRY during August, as she was on holiday and her son received his GCSE results – a time when she said she would find it really difficult not to post updates online!” Celina Benedict.

• Samantha Torrance took part in the Derby 10K and raised £130. • Trafford Community Leisure Trust sent in £3,000 raised through various activities in 2014 and 2015. • The University of Chichester PE Department sent in £200 raised through alumni party ticket sales. • Kate Vavasour sent in £480 raised through the Leeds University Union netball and rugby clubs’ annual ball. • Waitrose in Palmers Green sent in £215 raised from their Community Matters box. • Adele Webb sent in £120 raised through her fundraising page. • Wedlake Bell sent in £314.65 raised through a cake sale. • Laura Wheatley took part in the London Colour Run and raised £195.

• Dr Sajini Wijetilleka took part in a sponsored walk and raised £192. • Colin Williams took part in the Dads to Lads fundraising event and raised £177.50. • Wix Young Farmers Club sent in a donation of £2,500. • Norman Woodside sent in £494.72 raised through the Alderly Edge 5K Fun Run. • Antony Wootton raised £2,252.95 through taking part in the Prudential RideLondon-Surrey 100 2015. • The Wyre-Lune Region of Young Farmers held a tractor run and raised £100. • XPO Logistics, Stowmarket, sent in £100 raised by the staff through guessing the name of a soft toy.

Issue 68 | September to December 2015

Fundraising Events 2016 Please contact the fundraising team on 01737 363222 or email events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events, visit www.c-r-y.org.uk/category/upcomingcryevents All participants in mass-participation events who contact the CRY fundraising team (whether they have their own place or a CRY charity place) will receive a welcome pack containing sponsor forms, information, helpful tips and either a T-shirt or vest (depending on the type of event).

2016 Virgin Money London Marathon April 24

CRY welcomes anyone who has been successful in the 2016 public ballot who would like to run for CRY. Please get in touch if you are interested in a CRY place for 2017 and we will advise you when the public ballot opens for the 2017 marathon and when we are taking applications via CRunCH.

everydayhero Milton Keynes Marathon and Half Marathon

events so if you would like to register or find out more information please contact us.

London 2 Brighton Challenge May 28–29

Now one of the UK’s greatest endurance events – most of this year’s 3,000 challengers will walk the 100km, many will jog, and some will run it as an ultra-marathon. It’s real, no gimmicks, is achievable, and could be the most rewarding experience you’ve had for ages! Contact CRY for more info or to register for a place.

May 2

Vitality London 10,000

With 4,500 acres of woodlands, lakesides, parks and landscaped areas within the city boundary, Milton Keynes is the ideal venue for a Green City marathon. CRY can provide places for this event so if you would like to register or find out more information please contact us.

The London 10,000 starts and finishes in St James’s Park and uses Green Park as its assembly area. CRY has a limited number of places for this event and welcomes any “own place” runners who would like to join the CRY team.

Vitality Run Hackney Half Marathon May 8

Already one of the top 10 half marathons in the country, Vitality Run Hackney is the fresh new half marathon to hit the capital! CRY can provide places for this event so if you would like to register or find out more information please contact us.

Spartan Race Series

May 30

CRY Heart of London Bridges Walk June 26

Join us on the 10th CRY Heart of London Bridges Walk to raise awareness and funds. The 2016 walk will feature a new route passing by some of London’s most iconic landmarks. Registration is now open so if you would like to take part, please visit the website or contact us for further information.

Throughout 2016

Prudential RideLondon-Surrey 100

The Spartan Race series integrates obstacles with the natural terrain to create the best racing experience possible. There are three levels of adult races, as well as a range of races for children. CRY has places for these

The Prudential RideLondon-Surrey 100 starts in Queen Elizabeth Olympic Park and then follows a 100-mile route on closed roads through the capital and into Surrey’s stunning countryside, on to

114

July 31

a spectacular finish at The Mall. CRY has a number of charity places for this event and welcomes any “own place” cyclists who would like to join the CRY team.

Morrisons Great North Run September 11

The Great North Run is firmly established as the world’s greatest half marathon! CRY has a number of charity places and also welcomes any “own place” runners who would like to join the CRY team.

Windsor Running Festival September 24–25

The setting for the Windsor Running Festival is one of the most beautiful in the UK. CRY has a number of charity places for the Running4Women Windsor 10K, which takes place on September 24, and the Windsor Half Marathon, which takes place on September 25. If you would like to apply for a place or find out more information, please contact us. CRY also welcomes any “own place” runners who would like to join the CRY team.

CRY Durham Riverside Walk October 1

Join us on the seventh CRY Durham Riverside Walk to raise awareness and funds. The walk pairs beautiful countryside with the stunning backdrop of the city and cathedral for incredible views. Please get in touch to register your interest and we will advise you when online registration opens.

Parachute Jumps Assorted dates

For further details, please visit www.cr-y.org.uk/charity-fundraising-challengeevents

Issue 68 | September to December 2015

CRY Update 68 September to December 2015 Our Fundraisers The involvement of our fundraisers has been crucial to helping CRY raise awareness about young sudden cardiac death (YSCD). By fundraising for CRY our supporters have, in addition to highlighting our cause, helped to finance and develop our Bereavement Support Programme; the CRY Centre for Cardiac Pathology (CRY CCP); the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology at St George’s Hospital; and the CRY myheart Network to support young people living with potentially lifethreatening cardiac conditions. CRY also requires funding to support

medical research into YSCD; subsidise and expand our national screening programme; develop our education programme; and further our campaign for ECG testing of the nation’s youth. Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, literature, sponsor forms and other resources. If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.

Our Patrons

The urgency of CRY’s mission and the quality of our work has compelled many high profile personalities to give their time to become Patrons of our charity.

Current Patrons of CRY: Rob Andrew MBE,

John Barrowman MBE, Jeremy Bates, Ben Brown, Clive Clarke, James Cracknell OBE, Brian Dooher, Nick Easter, Jonny Evans, Baroness Ilora Finlay, Simon Halliday, Kathryn Harries, Michael Hoey, John Inverdale, Tom James MBE, Pat Jennings OBE KSG, Rob Key, Gary Longwell, Pixie Lott, Emily Maitlis, Graeme McDowell MBE, Professor William McKenna, Lee Mears, Bill Neely, Lawrence Okoye, Phil Packer MBE, Sir Steve Redgrave CBE, Joe Root, Andy Scott, Roger Taylor MBE, Professor Gaetano Thiene, Gregor Townsend MBE, Andrew Triggs-Hodge MBE, Andrew Trimble, David Walliams, Alison Waters, Matt Wells, Ray Wilkins MBE, Sir Clive Woodward OBE.

For more information visit www.cr-y.org.uk/charity-fundraisingchallenge-events or contact the CRY office for a fundraising ideas pack. There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we can also accept credit card donations over the phone. For further information telephone 01737 363222 or go to www.c-r-y.org.uk/donations All your help is greatly appreciated.

We can send regular information to CRY supporters via two distribution/mailing lists: 1. CRY Update magazine – postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Founder; many pages of supporters’ fundraising; articles about screening, research, pathology, raising awareness initiatives, mass-participation fundraising events, etc; and much more. 2. CRY enewsletter – sent monthly via email; includes a link to an electronic version of the CRY Update magazine, as-and-when each new issue of the Update is published. If you would like to subscribe to, or unsubscribe from, either of these two distribution/mailing lists, please let us know by: • Visiting the CRY website and completing the online subscribe/ unsubscribe form at www.c-r-y.org.uk/contact-form • Calling the CRY office on 01737 363222 • Emailing the CRY office at cry@c-r-y.org.uk

Sir Ian Botham OBE Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.” For more information about CRY’s Patrons, please go to www.c-r-y.org.uk/about-us/patrons

www.c-r-y.org.uk

115

Cardiac Risk in the Young Registered Charity No. 1050845

Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD). These include arrhythmogenic right ventricular cardiomyopathy (ARVC) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS). Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions. CRY aims to reduce the frequency

of YSCD by working with cardiologists and family doctors to establish good practice and appropriate screening facilities to promote and protect the cardiac health of our young. CRY believes cardiac screening should be accessible to all young people aged between 14 and 35. CRY also works to guide and support families and close friends affected by YSCD. We aim to put them in touch with people who have the knowledge and experience to answer their questions. We provide information to explain what the coroner does, practical guidelines to help with NHS referrals and advice on the procedures that usually follow a YSCD.

In addition, CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge. Detailed information about cardiac abnormalities and the range of literature available from CRY can be found on our website at www.c-r-y. org.uk/medical-information

CRY is grateful for grants or donations from trusts and foundations. We would like to thank the following for the generous support they have given us: Albert Hunt Trust • Biggart Trust • The Black Family Charitable Trust • Cecil Rosen Foundation • The Christopher H R Reeves Charitable Trust • The Davey Foundation • E C Graham’s Charitable Settlement • The Freemasons’ Grand Charity • Global’s Make Some Noise • Gwyneth Forrester Trust • Hasluck Charitable Trust • The Hilary Awdry Charitable Trust • Hospital Saturday Fund Charitable Trust • James Tudor Foundation • The Kirkby Foundation • Ladbrokes in the Community Charitable Trust • Mazars Charitable Trust • Mrs H C Beer Charitable Trust • Munro Charitable Trust • Pennycress Trust • Pharsalia Charitable Trust • Sir Jules Thorn Charitable Trust • The Sobell Foundation • Tudor Foundation Inc • The Whitehead Monckton Charitable Foundation

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

@CRY_UK

CardiacRiskintheYoung