CRY Update Magazine - Issue 78 by Cardiac Risk in the Young

News and Events | Raising Awareness | Our Fundraisers

Update 78 | January to April 2019

In this

CRYâ&#x20AC;&#x2122;s expert medical team

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Research news

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London Landmarks Half Marathon

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Virgin Money London Marathon

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Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

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CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK

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Newsletter

CRY Update 78 January to April 2019

Inside Update 78

Editor Dr Steven Cox

Chief Executive

Deputy Editor Newsletter Editor

Tom West

As Deputy Editor of the CRY Update it is my responsibility to put together this newsletter, and ambition that you find all the CRY news, events and fundraising in these pages to be of interest. I always endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to get in touch with me if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section. I would appreciate hearing from you at tom@c-r-y.org.uk or on 01737 363222 if you have any feedback or comments regarding previous issues. Thank you for your help.

Meet Our Representative News from the Chief Executive CRY Online CRY Screening Report Alison’s Column CRY Centre for Cardiac Pathology (CRY CCP) Report Research News London Landmarks Half Marathon 2019 Brighton Marathon 2019 Virgin Money London Marathon 2019 Our Fundraisers Raising Awareness in the Media Report Fundraising Events 2019

Contributors Alison Cox MBE

Founder

Professor Mary Sheppard Consultant Cardiac Pathologist

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Head Office:

Unit 1140B The Axis Centre Cleeve Road Leatherhead KT22 7RD No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor. The Editor welcomes letters but reserves the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of Cardiac Risk in the Young (CRY). Articles pertaining to health-related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more. Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised. If you can supply a writeup or photos for any fundraising activities you have taken part in, please email tom@c-r-y.org.uk.

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For more details regarding the events shown on the cover, please turn to the corresponding page references below. Images are listed clockwise from top left: 1. CRY supporters at the Four Trigs Challenge held in memory of Jonathan Hayman. Page 42. 2. CRY supporters at a fundraising event held in memory of Thomas Demaine. Page 36.

The gala ball held in memory of Pardeep Nagra. Page 55.

A quiz night held in memory of Andy Kenny. Page 48.

CRY Patron Bill Neely and supporters after the Virgin Money London Marathon. Page 20.

CRY supporters at the Wall Ultramarathon event, taking part in memory of Graeme Bell. Page 27.

A CRY supporter taking part in the Virgin Money London Marathon. Page 20.

CRY supporters taking part in the London Landmarks Half Marathon in memory of Robert Rowan. Page 16.

One of CRY’s new Ambassadors, James Gall. Page 5.

10. One of CRY’s screening events held in memory of Nathan Butler. Page 32. 11. The 7th CRY Ball held in memory of Adam Donnelly. Page 37. 12. A bake sale held in memory of Thomas Henson. Page 44. 13. CRY supporters taking part in the London Landmarks Half Marathon. Page 16.

Images of CRY Patrons and Members of Parliament throughout have been highlighted in red. Copyright © 2019 Cardiac Risk in the Young. Registered Charity No. 1050845 A Company Limited by Guarantee. Registered in England No. 3052985 Registered Office: Unit 1140B The Axis Centre, Cleeve Road, Leatherhead, KT22 7RD

Issue 78 | January to April 2019

Meet Our Representative It’s been 18 years since I was diagnosed with long QT syndrome and had my very first permanent pacemaker implanted; and 25 years since my father found me unresponsive on the Representative in Dorset bathroom floor, before resuscitating me – I later found out that 95% of females who suffer their first major ‘event’ do not survive. My father’s quick thinking had literally saved my life. Prior to this, for years on-and-off, I had suffered with what appeared to be random panic attacks. To finally receive a diagnosis was a huge weight lifted after seven years of not knowing.

Rebekah Goddard

Now aged 43 and having completed my family, it’s my turn to walk in parental shoes and experience the worry that comes with it. I knew before my two girls were born that there was a possibility of them inheriting my condition. “There’s a 50% chance that any of your children could have this condition,” is what I was told. They were bang on. Grace was three and Jessica was five months old when bloods were taken for genetic testing and sent to a specialist clinic in Italy, along with blood from myself and my parents. I knew it would be a long time until we would receive the results and they only came almost two and a half years later. No amount of preparing for the results can prepare you for how you feel when you hear them. I guess I knew all along that one of them would have long QT. I think a mother’s intuition kicks in and you just know. One day a lady phoned from the genetics unit at Taunton, who asked if I would be ok to receive the results over the phone. She said that both my parents had tested negative – BIG relief there! Then I said, “one of my girls has it, don’t they? It’s Jessica, isn’t it?”, to which she said, “how on earth did you know?”. The call ended after a bit more chat, none of which I can remember as by this point I’d zoned out, but I do remember putting the phone down, looking at Jessica, picking her up, holding her really tightly and sobbing like a dam had burst.

Jessica in hospital for an operation

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The feeling I had after the call was an intense mixture of relief to finally know so that I could process things and move forward, but this was over-shadowed by a huge cloud

of guilt, knowing that it was because of me she had this condition. All these years later, the guilt is still there, but much less so, knowing that she has never known anything else and is unbelievably happy with life – this does get easier to deal with. If I picture the alternative – not having my girls – that feeling would be far worse. The call told me several things. My parents were NOT responsible for me having long QT and Grace, my oldest daughter, was in the clear. It also meant that I had become the start of a chain that could pass the condition to future generations, starting with Jessica. This is a very difficult thing to comprehend. My mum constantly tells me, “Rebekah, for-warned is forarmed!” She always picks me up when I’m down. A series of appointments monitored Jessica’s heart at Yeovil Hospital and then Southampton General, where Jessica received the best possible care. ECG’s aplenty, 24-hour heart monitors, along with having a Reveal device implanted into her chest. At the age of three, she had her first one put in, then when the battery ran low at the age of six, she had another one implanted. The Reveal device allowed Jessica’s heart to be monitored for abnormal rhythms and would record anything untoward for the hospital to assess. At night, she had a device in her room to link her directly to the hospital in case anything sinister occurred whilst she was sleeping. Every six months a full download was done via this device straight to the hospital for assessment. After the second Reveal device, Jessica was implanted with her first permanent pacemaker. As she hit puberty (the time when I had started to show symptoms), Jessica was fully protected. Alongside her new ‘friend’, she takes beta blockers twice a day to ensure she has full protection from an ‘event’ ever occurring the same way it had done with me. The day she finally got her pacemaker was one of huge relief, knowing I had fought for so long to make her as safe as possible. Jessica amazes me at every turn! She’s never let the devices stop her and leads such a well-rounded life, enjoying sports and playing out with her friends and is a normal ‘nightmare’ pre-teen girl who clearly loves life. Despite cannulas, needles, post-op sickness, stitches and sore wounds, she has coped with hospital life like an absolute trooper, but she’s never known anything else, so she just accepts what ‘is’ and gets on with it. I am beyond proud of how she’s dealt with it all and she never complains. I’d like to think it’s because of how positive we’ve been as a family, never speaking of it negatively. It’s not easy being the reason your daughter has to go through life with semi-regular battery changes and constant medication, but I wouldn’t be without her. The guilt and I have come to terms with each other now and life is good, knowing she is safer. Jessica has just celebrated turning 12 and is loving life more than ever. What more could I ask for? Should anyone be going through anything similar and want to contact myself, or Jessica for that matter, please go through CRY who can point you in my direction. 3

News from the Chief Executive Dr Steven Cox

CRY Chief Executive

@Drstevenjcox drstevenjcox Thank you for everything that you continue to do to support CRY and raise awareness within your local communities. Included in this section are a number of media stories from January to April, as well as information about some of CRY’s events in this period.

January

A Yorkshire Three Peaks challenge completed in memory of Aaron

adults. The thousands of screenings you have provided have already made a real difference for young people in Cheshire. You should feel very proud of the profound impact you are making in Aaron’s memory.” Debbie said: “I am absolutely delighted to be receiving this award in recognition of all the work I do for Cardiac Risk in the Young in memory of Aaron. Since the loss of our son I have focused my efforts on raising awareness and money to screen for undetected heart defects, in order that other families do not suffer the heartache we do on a daily basis. Receiving this award contributes to promoting the need for young people to be screened.”

Debbie Dixon receives ‘Points of Light’ award for fundraising for CRY January 14 Debbie Dixon (above, with her family at the 2017 CRY Parliamentary Reception) has raised over £210,000 for CRY since the death of her son, Aaron. Her fundraising efforts have led to the screening of 2,500 young people in Cheshire. Debbie has made a huge difference in her local area, and has deservingly been honoured with the ‘Points of Light’ award for exceptional voluntary service. Former Prime Minister Theresa May praised Debbie’s efforts, and said the following in a personal letter: “After the tragic loss of your son, Aaron, you have shown remarkable resilience and commitment to improving the diagnosis of undetected heart defects among young

This is the fourth time that a family associated with CRY has received the ‘Points of Light’ award. We are delighted to see Debbie’s hard work acknowledged in this way, and are incredibly grateful for all she has done to support CRY and help save young lives.

February New research published with support from The Charles Wolfson Charitable Trust February 5 Thank you to The Charles Wolfson Charitable Trust for their tremendous generosity after making a £117,303 donation to CRY. This became the first trust donation to fully fund a research project for CRY, supporting Dr Gherardo Finocchiaro’s study “Idiopathic Left Ventricular Hypertrophy in Victims of Sudden Cardiac Death. Familial Hypertrophic Cardiomyopathy or Novel Disease Entity?”.

Issue 78 | January to April 2019

News from the Chief Executive CRY adds two new Ambassadors March 26 Our newly established group of CRY Ambassadors continues to grow. In March we were excited to announce two new additions: international hockey player James Gall, and artist Katy Jade Dobson. Dr Finocchiaro speaking at the 2018 CRY Conference

This research furthered our understanding of idiopathic left ventricular hypertrophy, why it may not be on the hypertrophic cardiomyopathy (HCM) spectrum, and how important early testing is, as the diagnosis of HCM was only made after death in 78% of the individuals in the study as so few reported any symptoms. To learn more about this research, turn to page 15.

March

James (right) is currently an England and GB international player (representing England at the World Cup in December 2018) and plays club hockey for Surbiton. He lost his friend and fellow Surbiton player, Emma Broad, when she died suddenly during her sleep in 2011, aged just 16. Then, while James was a student at the University of Nottingham, one of his friends, Nadeesha Jayawardene, also died suddenly from a previously undiagnosed heart condition. “As I’m sure is the case with everyone who has a connection with the charity, it’s incredibly powerful, losing a young person from a cause that is so often preventable, and that stays with you for a long time,” James said after becoming an Ambassador. “I am immensely proud to be taking on this role of Ambassador and working with CRY towards raising even more awareness, especially within the sporting and hockey community.”

London Landmarks Half Marathon March 24

Since completing a portrait for a family who lost their child to a cardiac condition, Katy (below) has wanted to help CRY. She has already supported CRY for several years by launching auctions for some of her work, and

CRY had a huge amount of support at the London Landmarks Half Marathon this year, with 69 runners taking part (54 more than 2018). It’s always brilliant to see so many CRY supporters taking part, raising money to help prevent young sudden cardiac deaths while spreading awareness at an event that included over 13,000 other runners and a host of supporters along the streets. Thank you so much to our runners, volunteers, cheerers and CRY staff who all helped make the day a success. You can see a write-up of the event on page 16.

www.c-r-y.org.uk

News from the Chief Executive she’s developed a large following – her works have been displayed in 80 galleries around the UK and the current waiting list for new commissions is over eight months.

and David received the Pride of Birmingham Award this March, as well as a nomination for a Pride of Britain Award.

“It should never be the case that a child or anyone should lose their life so suddenly over something that could potentially be diagnosed earlier on,” Katy said.

Sue and David went on BBC Radio Stoke to talk about their work to support CRY.

“CRY’s incredible efforts towards reducing young sudden cardiac death (YSCD) with their research, raising awareness and prevention efforts in this field are lifesaving. The support and specialist services to aid families affected by YSCD will continue to help so many people who desperately need it. Contributing to CRY’s wonderful work means a great deal to me and I am immensely proud to be working with CRY towards this cause, especially in this role as Ambassador.” We’re excited to have both James and Katy on board in this official capacity to support CRY, and look forward to working with them.

April Sue and David Hughes honoured with Pride of Birmingham Award April 1 Sue and David Hughes’s son, Daniel, died suddenly during his sleep four years ago. Sue and David have been avid supporters of CRY since, and have raised a phenomenal total of over £200,000 to support CRY and host screening events, resulting in the testing of 1,204 young people. To honour their fundraising efforts, Sue

“It’s very nice,” David said when asked if he and Sue were proud to have their work recognised with the award. “Unexpected. It’s not what we do it for, we do it to raise awareness and to save young lives, but it’s lovely to be recognised and so far from home as well. To be recognised that far from our own patch is really humbling. “Because we want to get the message out there, you don’t realise just how far it is getting out there, so you’ve just got to keep pushing all the time,” Sue said. “But to know that we’ve picked something like this up from there, then obviously it must be getting out there and this will hopefully get it further out there as well.” As David highlighted, it’s vital to pick up heart conditions early. “We had a young lady come through our first screening by the name of Lucy Smith,” David explained. “She was only 17, she didn’t know she’d got a problem, and she was diagnosed with complete heart block. On the day, they sent her straight up to the hospital, admitted her on the day, and she spent 12 days in hospital and eventually had a pacemaker fitted.” We are so grateful to Sue and David for all they have done to support CRY, and all our supporters around the UK who work to raise awareness, funds and host screening events to save young lives.

EuroPrevent 2019 April 11-13 The EuroPrevent conference was held in Lisbon, Portugal, this year, and CRY was once again well represented by our doctors. This conference is always a fantastic opportunity for CRY doctors to join other international experts and discuss new research into the prevention of cardiac disease and young sudden cardiac death.

Sue and David Hughes (right) at the 2018 CRY Parliamentary Reception

CRY Consultant Cardiologist Professor Sanjay Sharma spoke about “Medical services planning during mass endurance events,” which also covered effects of marathon running on the body and how much work goes into orchestrating the medical support provided during an event like the Virgin Money London Marathon (which was an important topic with the 2019 marathon just a

Issue 78 | January to April 2019

News from the Chief Executive

A chart from Professor Mats Börjesson, who has spoken at the CRY Conference, illustrating the decline in the incidence of all medical complications for marathon runners when using screening

couple of weeks away at the time). Along with Professor Sharma, many past and present Research Fellows attended to present some of their research. Poster presentations from our doctors included Dr Joyee Basu’s “An analysis of life saving therapies in hypertrophic cardiomyopathy”; Dr Ibrahim Bashar’s “Aortic root remodeling in life long veteran endurance athletes”; Dr Aneil Malhotra’s “Efficacy of the international recommendations in adolescent athletes”; Dr Hamish MacLachlan’s “Additional yield and challenges transthoracic echocardiography as a firstline screening tool; experience from a national cardiac screening programme in elite cricketers”; and Dr Gemma Parry-Williams’ “The short PR interval in young athletes.” Other CRY doctors also gave excellent presentations. Dr Gherardo Finocchiaro spoke about diastolic function in athletes and From Dr Gherardo Finocchiaro’s presentation on how it helps to diastolic function in athletes differentiate an athlete’s heart from hypertrophic cardiomyopathy, while Dr Stathis Papatheodorou looked at individualized risk assessment in competitive athletes with an abnormal ECG. Thank you to all of our doctors for coming to EuroPrevent, and yet again making it clear just how important CRY’s research is in the medical community.

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Virgin Money London Marathon 2019 April 28 Thank you to the 108 CRY runners who represented CRY at this year’s London Marathon. It’s brilliant for us to surpass 100 runners after coming so close last year with 99. Having so many of our runners along the course in CRY t-shirts is always amazing to see as a sign of our growing support. There was a great atmosphere and I was able to see Tom Ledgard run past me in the CRY heart costume, who was taking part in memory of his brother, Kris. Thank you to Professor Jenny Higham (right), the Principle of St George’s University, for running in support of CRY as well, helping to raise awareness of what we and the team at St George’s do to prevent young sudden cardiac deaths. Lastly, thank you to CRY’s Consultant Cardiologist Professor Sanjay Sharma for serving as the London Marathon Medical Director. For a full write-up of the day, turn to page 20.

CRY Online Social media Social media is a vital part of how CRY interacts with supporters and, first and foremost, raises awareness of young sudden cardiac death and what can be done to tackle it – from preventative measures (screening) to bereavement support for those affected by a tragedy. In the CRY Online segment, we look back at the fourmonth period the Update covers and include a small selection of social media highlights, such as Facebook posts that reached an amazing amount of people, or supporters who tweeted memorable photos at us. CRY recorded 3.63 million impressions (the number of times a post is displayed on someone’s personal feed) across our main Twitter and Facebook accounts from January to April, with some major events like the London Landmarks Half Marathon and Virgin Money London Marathon and good press coverage to help raise further awareness through social media. The top Facebook post from the period shared our “Beaten” video, which depicts how suddenly a young person can die if they have an undiagnosed heart condition – in this instance, a young person is shown playing rugby before collapsing on the pitch. It’s a powerful video, which was shared 503 times with this post alone, and is an excellent way to raise awareness online.

the period was to wish our runners luck on the morning of the marathon, and thank all those supporting CRY. CRY Patron Bill Neely completed his 10th consecutive London Marathon for us as well this year, running in memory of Katrina Brown. We are so grateful to Bill for all the support he has given us over the years. Our biggest social media highlight for this period had to be surpassing the milestone of 30,000 ‘likes’ on our main Facebook page. Increasing our following on platforms like Facebook is so valuable. It furthers our reach to raise awareness, ensuring more people know about the work of CRY, young sudden cardiac death, and how important it is to be screened. Interacting with us on social media is an easy way to keep up to date with any CRY information you might need. You will receive updates on upcoming events and screenings; and photos from fellow supporters. Every share of a post helps spread awareness about CRY a little further. So, if you’d like to follow along, here’s where you can find us:

One of the biggest events for some of our fantastic supporters every year is the London Marathon. We were so grateful for everyone’s efforts on the day, with 108 runners taking part for CRY. Our top Instagram post from

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK Issue 78 | January to April 2019

CRY Online

As always, our infographics served as a fantastic way to spread awareness and inform more people about the incidence of young sudden cardiac death and the need for screening. One of our top tweets in April highlighted this, and reached over 40,000 people.

Aron Preece is an example of the impact heart screening can have. Aron’s mum, Kerry, took him along to a CRY screening to get him checked. To their complete surprise, an abnormality was found and Aron was later diagnosed with Wolff-ParkinsonWhite syndrome. Following successful treatment, Aron has now returned to his passion – swimming – and is competing at a national level. A Tweet sharing an article about their story from Shropshire Live received lots of interaction, ensuring more people realise how screening can save lives.

In January, Trojans Rugby Club held the Ben Smith Memorial Match to raise money for CRY. Well-known rugby referee Nigel Owens was kind enough to attend the event to offer his support and referee the match. He also shared a tweet about the day and everyone’s support of CRY to his 350,000 followers.

www.c-r-y.org.uk

CRY Online As part of the CRY Online segment we will include Facebook posts from Chief Executive Dr Steven Cox (found at drstevenjcox), providing thoughtful responses to news and events from the last few months.

CRY’s approach to ECG screening How many times should a young person have their heart tested and when should the first test be done within a screening programme? This question is often asked. The answer is not straightforward and in all likelihood it will change as we learn more about the conditions which cause young sudden cardiac death (YSCD), and how and when to best identify those at risk. CRY wants every young person to have the opportunity to have their heart checked (with at least an ECG) at least once, as soon after their 14th birthday as possible. As it currently stands an initial ECG read by an expert will identify the majority of conditions that can cause YSCD. Some conditions can be acquired (e.g. myocarditis) or some conditions can present themselves at a later age (e.g. late onset hypertrophic cardiomyopathy after the age of 18). Furthermore, when the doctor reviews the evidence (medical questionnaire and ECG) they will be basing their judgement on the information they are provided with. If a person develops new symptoms after the screening (e.g. chest pain or passing out during exercise), they should have these symptoms investigated regardless of the result of the previous ECG screening. The initial ECG done with CRY may be helpful when the doctor reviews a new ECG to see if anything has changed. Some conditions will not be identified on an initial ECG (e.g. coronary artery anomalies) and although these conditions are common and usually low risk, a new symptom like chest pain may be an opportunity to investigate a person further to identify a condition which has become more serious. Furthermore, if a person becomes aware of a family history of a potentially genetic condition after the screening, they would need to be referred to a specialist for additional tests. An example of this would be a young person being reassured after having an ECG with no symptoms or family history, who then discovers three years later that his father has hypertrophic cardiomyopathy (HCM). At this point, as HCM can be a genetic condition, they should be referred to a specialist for additional tests, including an echocardiogram and exercise test. There are also some conditions like atrial septal defects (ASD) which are quite common and can be picked up on an echo prior to any symptoms being experienced. If only an ECG is conducted, the ASD might be missed and it may only

be when a person becomes symptomatic (because the ASD has worsened and is having a greater impact on the way the heart is functioning) that the echo test will be conducted which would identify the ASD. When we think about the age of testing it could be argued that we should test before 14. I am sure that one day this will happen, as some conditions like long QT and WPW can be picked up prior to puberty. However, we need more evidence about the best way to test younger age groups and the impact screening at the earlier age will have before we reduce the age for screening. We currently require a person to be 14 because this is an age when young people have usually gone through puberty. There is still the issue that a proportion of people tested at the age of 14 will have “juvenile” patterns on their ECG, and they will need to be tested again to confirm that the pattern has normalised. This is why a percentage of young people CRY tests with juvenile patterns will be advised to return for screening one to two years after the initial ECG. The take-home message is CRY wants every person to have the opportunity to have an ECG at least once, as soon after the age of 14 as possible. If someone wants to be retested at a later age, they should do this. If at any point they develop new symptoms or become aware of a family history of a genetic condition, they should be referred for further investigations. However, the screening recommendations are different for elite athletes. Whilst in the general population (non-elite athletes) the current evidence suggests a cardiac screening with an ECG will identify the majority of conditions which can cause YSCD, there is evidence within elite athletes, due to the constant physical nature of their lifestyle, that they should have repeat cardiac screening whilst they are competing. In some organisations this would be every two years. Others have suggested this should be every six months. We would suggest every two years as a minimum, ideally every year. Furthermore, due to the nature of their lifestyle, what may be considered a low risk condition for a non-athlete could have a major impact over time for a person pushing their body to its physical limits every day. This is why there is a strong argument for elite athletes to routinely have ECG testing during their competitive years, but also they should have an echo at least once to identify conditions which can be missed during routine ECG screening. The ECG is the best screening tool we have – relatively cheap, non-invasive and low false positives. If you do more tests with greater frequency, you will identify more conditions, but we have to accept the cost of identifying the conditions will significantly increase. It is important to look at the resources which can realistically be made available and to find a balance of what can be offered.

Issue 78 | January to April 2019

CRY Screening Report Between January and April 2019 CRY screened over 10,600 people 740 people were screened at our National Screening Centre at St George’s Hospital, London, funded by donations from Coral Samuel Charitable Trust, The Schroder Charity Trust, and Unite Retired Members. 1,049 athletes were screened at sports screenings, including: Salford Red Devils RFL, Hull FC RFL, Huddersfield Giants RFL, Rugby Football League (RFL), Ipswich Town FC, Wigan Warriors RFL, Welsh Rugby Union, RFL Development Squad, Kent County Cricket Club (KCCC), Lee Valley EIS, Manchester EIS in memory of Aaron Dixon, Derbyshire CCC, RFU U16s Wellington Festival, EFY England counties U18s. At 44 family screenings 6,689 people were screened. These were held in memory of: Simon Carloss (Shropshire), Lewis Marsh (Chobham), Ryan Terry (Crowborough), Ben Smith (Sale), Jack Maddams (Tonbridge), Matthew Cragg (Harpenden), Dean Mason (Whitland, Wales), Matthew Hesmondhalgh (Garstang), Sam Standerwick (Abergele, Wales), James Murgatroyd (Etwall), Charlie Holden (Middleton), Jack Thomas (Blackwood), Adam Lewis (Warrington), Philip Standing (Romsey), Tom Lovatt (Stoke-on-Trent), Daniel Hughes (Derby), Ben Daniels (Orpington), David Moss (Stoke-on-Trent), Paul McCann

(Peterborough), Jack Thompson (Dartford), Sam Wright (Derby), Ben Hammond (Tenterden), Rory Embling (Wakefield), Pardeep Nagra (Groby), Kayleigh Griffiths (Witham), Andrew Parr (Preston), Chloe Waddell (Altrincham), Owen Morris (Llanrumney, Cardiff), Jenny Bucknell (Staines), Mike Clarke (Northwich), Jannik Lam (Watford), Isabelle Tudisca (Woodford Green), Zoe Teale (Stoubridge), John Marshall (Ormskirk), Bethany Mycroft (Chesterfield), Nathan Butler (Newcastle-under-Lyme), Jake Dean (Stoke-on-Trent), Craig Lunt (Isle of Man), Amy Osborne (Topcliffe), Adam Green (Market Drayton), Jamie Loncaster (Melton), Aaron Dixon (Preston), John Millar (Ardrossan), Ian Bowen and Leon Manners (Redcar). 1,388 young people were screened at 11 school screenings held at: New Hall School (Chelmsford), Shrewsbury School (Shrewsbury), Sherborne School (Sherborne), Prince William School (Oundle), Kings School (Worcester), Reed’s School (Cobham), Eton College (Eton), Millfield School (Somerset), Benenden School (Cranbrook), RGS Worcester (Worcester), Knutsford Academy (Knutsford), and Dauntsey’s School (West Lavington). 752 people were screened at seven further screenings held at: Sarisbury Green Community Centre (Southampton), Cardiff Metropolitan University (Cardiff), Plume Academy, Maldon (by The Daniel Wilkinson Foundation), Eastside Community Sports Trust, Hedon (by The Daniel Wilkinson Foundation), the University of Gloucestershire (Gloucester), and the University of Ulster (Coleraine, Northern Ireland).

Screening in memory of Phil Standing at the Mountbatten School

What happens at a screening? The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart. Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire. If a more detailed image is needed (about 5–10% of individuals), an echocardiogram can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform. The screening programme is under the aegis of Professor Sanjay Sharma.

“Tuesday February 12 saw the third CRY screening event arranged in memory of my son, Phil Standing. It was, as always, a well organised, efficient and friendly day. Jason and his team were superb and informative, putting the 102 students who attended at ease. This event was able to take place because of the fundraising efforts of the staff and students of the Mountbatten School, family and friends. Head of RE Kelly Brooks encouraged, empowered and energised staff and pupils into many fundraising activities. She herself took part in the Mallorca Iron Man, raising over £1,000. Staff took part in marathons, half marathons, and, in particular, 40 staff did the Wolf Run in Ashdown Forest. Staff and students ‘Walked the Test Way’, a 25-mile walk on the wettest day of the year! The students organised cake bakes, sponsored activities, and a non-uniform day. One student had her hair cut off and sent it to the Little Princess Trust and raised over £600 for CRY. It was an amazing effort to raise the £5,000 needed and I thank everybody for their efforts.” Sue Fisher.

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Alison’s Column CRY’s expert medical team: Professor Mary Sheppard

Alison Cox MBE CRY Founder

I have always found pathologists rather unnerving. First encounters suggested that they did not suffer fools gladly, were short on conversation, and discussing anything other than their work was time wasted. Few pathologists, 20 years ago, were female. And then there was Mary.

Mary was one of 11 children born into a very supportive family in Ireland who believed in university education for both girls and boys. Her father, in particular, encouraged her to pursue a career in line with her brothers who attended University College Cork, Ireland together. But Mary might not have pursued the medical road at all without the special attention given to her by her biology teacher Mrs Rita Murphy, a teacher at what was then St Catherine’s Convent Secondary School in county Limerick. “She was my inspiration,” Mary revealed. “She taught us well and I loved it.” Hard though it is to credit now, science subjects only became available in Ireland to students aged 16 after their Inter or Junior Cert, which for Mary meant she had just two years to make up for lost time and secure the points she needed to study medicine. She qualified from University College Cork, Ireland in 1980 Professor Mary Sheppard where her mentor, Professor Cuimin Doyle, encouraged her unusual interest in pathology, and Professor Katy Keohane also proved a key role model both professionally and personally in Mary’s growing interest in research and the academic side of medicine. Following initial training in her chosen specialty of pathology in Cork, she became the first Irish doctor to win a Wellcome Research fellowship and completed her research Masters in Medicine MD at the Royal Postgraduate Medical School in London. Mary met her husband, fellow Irishman property developer Jim Long, at an Irish wedding in London. “I got my MD the

day before we were married,” Mary explained, and Jim proved a tremendously supportive husband as they shared responsibilities for their family of four children whilst their career paths mutually developed at a steadfast pace. In London she began the five-year journey to become a consultant pathologist, completing specialist training in histopathology at University College Hospital, London and subsequently working as a specialist consultant cardiothoracic pathologist at the Royal Brompton Hospital for 25 years. Mary’s work was with the Royal Brompton Hospital and Imperial College where she trained and worked with leaders in both pulmonary and cardiac pathology. Further post graduate studies, including a Fogarty postgraduate fellowship, brought her to the National Institute of Health in Bethesda, Maryland, USA, and the Armed Forces Institute of Pathology in Washington DC in 1996-1997. Following a merger of hospitals, she met her inspiring mentor, Professor Michael Davies, and began her specialisation in cardiac pathology. Professor Davies was the first to initiate research into the area of sudden death in the young. “It happened of course, but people just didn’t talk about it,” Mary explained. “They just had to accept it. [Professor Davies] was the first to pioneer the investigation into it. He taught me and helped me to develop the model for the national investigation of sudden cardiac death in the UK.” Mary and I first met in 2006 when we were both invited by Heart Czar Professor Sir Roger Boyle to be in the group that was selected to discuss the issues of addressing young sudden cardiac death, after CRY’s Private Members Bill had been successful in the House of Commons. At the time I was keen for CRY to take its next step forward and have its own pathologist, so that families did not have to deal with the anguish of long waits for the pathology of their child, sibling or partner to be diagnosed. After the tragic deaths of Howard English in 1993 and Sebastian English in 2004, the family set up a memorial fund in their memory when they found about CRY which raised in excess of £100,000. Howard died whilst playing rugby, and his pathologist’s incorrect diagnosis directly led to the death of his son, Sebastian, because he was not screened. The family were pleased to support a CRY Centre for Cardiac Pathology (CCP) with the funds that had been raised to both help save other young people’s lives and support the important research which would follow. Mary’s unique social skills (which are so important in

Issue 78 | January to April 2019

Alison’s Column and help them understand how it was possible for such a terrible tragedy to happen. Mary’s publications:

Mary (left) at the CRY Centre for Cardiac Pathology in 2014

talking to families after their tragedy) suggested to me she would be the ideal pathologist to take on this challenging, very unusual initiative which was launched at the Royal Brompton Hospital in 2008. The immediate objective was to reduce the suffering of families with a fast track pathology service so that families no longer had the excruciating wait – sometimes in excess of 18 months – to learn what killed their child, sibling or partner so suddenly, and who had seemed so fit and healthy. In 2013 Mary was appointed Professor of cardiovascular pathology at St George’s medical school, one of the leading medical schools in the UK. The intervening five years had led to CRY’s Centre for Cardiac Pathology, and the research that was produced being nationally recognised. Conscious of the devastation felt by families, Mary always endeavoured to speak to a family member when given the opportunity to explain her diagnosis and how such a thing could happen.

Rupert Hunter, Mary Sheppard, Stephanie Hunter, CRY Patron Baroness Ilora Finlay, Alison Cox, and CRY Chairman Hugh Mulcahey at the launch of the CRY Centre for Cardiac Pathology at St George’s in 2014

At a recent Guardian newspaper interview the journalist asked Mary what was the one thing that she felt most pleased that she had been able to achieve. It said a lot about Mary, and why she has been so suited to her unique role, that her response was being able to talk to the family

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•

350 publications in peer reviewed journals.

•

Numerous case reports, book chapters reviews, letters, and articles.

Mary at the CRY Centre for Cardiac Pathology in 2014

•

International guidelines and government documents.

•

Several books in cardio pulmonary pathology.

•

Third edition of book “Practical Cardiovascular Pathology” will be published in 2020.

Achievements: •

Appointed national trainer in cardiovascular pathology for forensic and general pathology trainees in the UK.

•

An advisor to governmental bodies and the Royal College of pathologists.

•

Runs an annual course in cardiovascular pathology.

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Established a cardiac training programme for pathologists worldwide.

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Awarded the Stokes medal by the Irish Cardiovascular Society in 2009.

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Immediate past President of the European Association of Cardiovascular Pathology.

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Appointed to international panels determining funding in the area of cardiac arrhythmias and sudden cardiac death.

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On several panels issuing international guidelines on cardiac pathology and cardiology in the investigation of sudden cardiac deaths and cardiac arrhythmias.

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Admitted as an honorary fellow of the faculty of pathology at the Royal College of Physicians of Ireland in 2018.

CRY Centre for Cardiac Pathology (CRY CCP) Report

By Professor Mary Sheppard Professor Mary Sheppard, Consultant Cardiac Pathologist

Susanna Cooper, Laboratory Technician Khari Edwards, Laboratory Technician

The CRY Centre for Cardiac Pathology is a national referral centre for the pathological investigation of young sudden cardiac death (YSCD) with an established national database. We had 214 heart cases from January to April 2019, with causes of death given in all cases (see below).

Causes of death January to April 2019

getting splenic tissue for genetic testing in sudden cardiac deaths. Genetic analysis, combined with clinical follow-up, will give valuable information in the future for families.

Recent achievements for CRY’s CCP • Dr Kathryn Griffin – Awarded Marian and Christina the

Ionescu Travelling Fellowship to train with CRY staff in cardiovascular pathology • Dr Gherardo Finocchario was successful in his PhD submission co-supervised with Professor Sanjay Sharma

Departmental highlights • January – Professor Sheppard representing cardiac

There is a very good turnaround time of usually seven days for issuing a report – which is vital for families who are anxious at such a distressing time – to get an answer as to what caused the death of their loved one. We also obtained consent to retain cardiac tissue for research in 50% of the cases referred to us, which forms a valuable biobank in the investigation of the causes of YSCD. Our database forms a valuable source of research within St George’s clinical cardiology team. We are also increasingly

Visitors • Dr William Boyle, a consultant

pathologist from Wolverhampton, came to train in cardiac examination.

• Dr Kathryn Griffin, a clinical fellow

based in Leeds, will collaborate on research projects on cardiac innervation with Joseph Westaby. She has also been trained in cardiovascular pathology and was awarded a travelling fellowship.

• Jennifer Tollit, a Clinical Nurse

Specialist from Great Ormond Street

pathology at European meeting in Amsterdam of Dutch, Danish and UK experts on sudden cardiac death to establish collaboration on clinical and genetic testing (right).

• February – Meeting of board of European Association of

Cardiovascular Pathology in Madrid (Professor Sheppard President 2016-2019).

Hospital, visited to see cardiac dissection within the department.

Invited expert panel member for guidelines • Guidelines on sudden cardiac death

– Asia Pacific Heart Rhythm Society.

• Guidelines on ischemic heart

disease – European Association of Cardiovascular Pathology.

• Guidelines on grown up congenital

heart disease – European Association of Cardiovascular Pathology.

Invited lectures • Amsterdam, Netherlands – meeting

for SADS-Y Grant.

• Madrid, Spain – Iberian meeting of

inherited cardiovascular disease.

• London Pan Aortic Group – Aortic

dissection – A UK strategy, consultation launch event.

• Guy’s Hospital, London – Cardiac

Support Group (GSTT) lecture on cardiac anatomy, normal and pathology.

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Research News cardiomyopathy (HCM) diagnosis at autopsy. 196 cases of HCM were found. The referring coroner and pathologist completed a questionnaire to provide more information about the deceased, such as past medical and family history, preceding cardiac symptoms and the exact circumstances of their death.

CRY received an extremely generous donation of £117,303 from The Charles Wolfson Charitable Trust to fund a project by former CRY Research Fellow Dr Gherardo Finocchiaro (above, speaking at the 2018 CRY Conference) into left ventricular hypertrophy (LVH). This is the first time a single trust donation has fully funded one of our research projects. The project, entitled “Idiopathic Left Ventricular Hypertrophy in Victims of Sudden Cardiac Death. Familial Hypertrophic Cardiomyopathy or Novel Disease Entity?”, was published in the Journal of the American College of Cardiology in February 2019. The research reviewed a database of 5,100 consecutive cases of sudden cardiac death (SCD) referred to CRY’s Centre for Cardiac Pathology between January 1994 and March 2017, examining the characteristics and circumstances of death in cases with a hypertrophic

The study found that more individuals died at rest or during daily activities (150) than during exercise or emotional stress (46). When individuals did die during exercise, 89% were male. Additionally, only 26% of subjects reported having cardiac symptoms before death, highlighting how easily conditions can go undiagnosed and lead to tragedies. Studying family history helped provide more insight into how often cardiac conditions may be inherited. 46 families were investigated, with 35% of families showing a diagnosis of an inherited condition, the most common being Brugada syndrome. Ultimately, the diagnosis of HCM was only made after death in most cases (78%). With such a small percentage of individuals reporting any symptoms, it’s clear just how important early testing – and family testing following a SCD – can be. Without the use of tests such as ECGs, conditions like HCM could go completely unnoticed. As for idiopathic LVH, it did not appear to be on the HCM spectrum, even though this can be considered to be the case. No family members of decedents from SCD who had a diagnosis of idiopathic LVH showed phenotypic features of HCM. Furthermore, molecular autopsy in 30% of the families failed to find pathogenic variants in genes that are known causes of HCM, making it likely that idiopathic LVH and HCM are different pathological entities. Research is what enables us to further our understanding of young sudden cardiac death and the conditions that can cause it. We couldn’t do this without our doctors, and the tremendous support we receive to fund research projects like these.

Dr Finocchiaro giving his presentation, “Idiopathic left ventricular hypertrophy. Cardiac adaptation gone wrong?”, at the 2018 CRY Conference

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Thank you once again to the Charles Wolfson Charitable Trust for their generosity to support this project, and to Dr Finocchiaro for all the valuable research he has completed for CRY over the years.

London Landmarks Half Marathon 2019

Thank you and congratulations to the 69 CRY runners who took part in the London Landmarks Half Marathon on Sunday 24th March 2019! We were so pleased that we managed to see and cheer on all of our runners on the day, despite 13,000 runners taking part. We were fortunate that the weather was sunny and bright, and the buzzing atmosphere along the route really made the day special. With choirs, musical performances, dance acts, themed cheer stations and historical activities, the event’s atmosphere was really brought to life. We saw some fantastic costumes along the route, including CRY’s two mascot runners participating in the inspiring mascot relay race at mile 5-6; and, of course, the enthusiastic CRY cheering teams who spurred on our CRY London Landmarks team to the finish! The 13,000 runners started at Pall Mall, finished by Downing Street and ran through both the City of London and the City of Westminster. Mile markers revealed quirky facts to show London’s hidden secrets. There

were fabulous views along the route of London’s most iconic landmarks, including Big Ben, St Paul’s Cathedral, Nelson’s Column, the Gherkin, the Shard, the Tower of London and the London Eye. CRY staff Rhianne Watson, Nicola Wright, Chloe Watson and Hiddy Denizer were there on the day along with our amazing volunteers Lucy Bowyer, Beth Cox, Ada Zguros, Lisa McCullough, Wendy and Robert Panton and their daughter, Leon and Wendy Griffiths, Linda Bilboe, Lynn and Tony Beadle, and Diana Hunt at a few different spots along the route to cheer on all 69 CRY runners. We were so glad that we were able to see all of the CRY team, many of whom we managed to see more than once. Our noisy new cheer items – including megaphones, cowbells, clap banners and whistles – really helped us to stand out from the crowd! Everyone seemed to enjoy the day and, once again, it was lovely to see so many groups of family and friends, united in support of their runners.

The Team CRY runners:

Peter Fancourt (in memory of Taylor Panton) | Michael McCarthy (in memory of Amanda McCarthy) | Ryan Scarff (in memory of Ben Ramsay) | Susan Pearce (in memory of Benjamin Robert Percival) | Sian Davidson | Suzanne Rowan, Debbie Millar, Victoria Marshall, Lisa Giove, Joyce Davies, John Hyland, Laura Falconer, Sherry McDonagh, Dawn Busby, Paul Cree and Waverley Grainger (in memory of Robert Rowan) | Claire Speer (in memory of Leon Walker) | Kelly-Ann Vannorden (in memory of Elizabeth Ransom) | Leah Pearson (in memory of Lily Grace Webster) | Pippa Wood (in memory of Matthew Cragg and Cameron Corrie) | Gwyneth Franklin (in memory of Gemma) | Gabriella Hill (in memory of Nic Willoughby) | Amy Powell (in memory of Richard Field) | Cliodhna Ni Riain, Kate Lynch and Sorcha Ni Riain (in memory of Deirdre Lynch) | Jayesh Makan | Anne Chambers and Jamie McMillan (in memory of Andrew Lancastle) | Marie Richards (in memory of Joanne Tew) | Marina Tomsett and Victoria Robins (in memory of Andrew Philip Carter) | Eleanor Ruth Mather, Lucy Boobyer, Phoebe Eaton, Georgia O’Connor, Amber Coleman, Emma Strachan, Lucy Portsmouth and Lucy Clowes (in memory of Andy Kenny) | Ashlei Paige O’Brien (in memory of Kayleigh Rianne Griffiths) | Noel Fitzgerald, Kiley Ganderton, Joshua Jacobs, Kevin Watts, Lindsay Duncan Harris, Samuel Ashdown, Teddy Bevan, Paul Bryenton, Conor Gray and Roisin Gray (in memory of Anthony Fitzgerald) | Lauren Shukru, Victoria Kirk, Karen Anne Frances Wilcox and Paula Hawkins (in memory of Freya Cox) | Bethany Williams and Annie Williams (in memory of Aaron Dixon) | Susan Gibbs | Andrew Francis Howie and Sarah Ramsey (in memory of Ben Daniels) | Jennifer Cambell (in memory of Ariana Layla Jahangir) | Kate Hare (in memory of Richard Brember) | Farhana Arjumand Ara | Alejandra Miyazawa | Janet Sharples (in memory of Ryan Mark Terry) | Tammy Chan (in memory of Terry Chan) | Richard West | Stephen Kelly (in memory of Michael McCullough) | Noelene Russell (in memory of Leon Walker)

Issue 78 | January to April 2019

London Landmarks Half Marathon 2019

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London Landmarks Half Marathon 2019

Issue 78 | January to April 2019

Brighton Marathon 2019

We would like to say congratulations to the 10 CRY runners that took part in the Brighton Marathon on Sunday 14th April 2019, and a huge thank you for their kind support and fantastic fundraising efforts! We do hope they enjoyed the experience. It was a lively atmosphere, as is always the case for this wonderful seaside event. This energy, along with the tremendous amount of supporters, really helped the runners along the course. Especially towards the end of the route, where the crowds cheered all the runners across the finish line in

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challenging windy conditions. Over 10,000 runners took to the start that saw them do a loop of Preston Park, then down to the seafront to perform a large scenic stretch, before passing the ever lively Brighton Pier on the final run to the finish line. Again, we would like to say a huge thank you to the team for all their fantastic efforts with training, raising awareness and fundraising. We really appreciate all of their support. We would also like to say a big thank you to all of our supporters who gave up their time to cheer on the CRY team.

Virgin Money London Marathon 2019

Congratulations and a huge thank you to all the CRY runners who took part in the Virgin Money London Marathon 2019 on Sunday 28th April. We’re extremely proud of all our runners and grateful to them all for choosing to support us. 108 runners supported CRY this year, running the 26.2mile course through the heart of London. Running his 10th consecutive race in memory of Katrina Brown was CRY Patron Bill Neely, Chief Global Correspondent for NBC. Runners and supporters were greeted at the start line to wish them good luck and kick off our social media coverage, as CRY staff went on to post photos on Twitter throughout the day. After completing the marathon, in far cooler weather conditions than last year’s recordbreaking temperatures, runners were invited to a postrace reception at the Washington Mayfair Hotel, where refreshments, shower facilities and much-deserved complimentary massages were available. CRY staff, volunteers and our runners’ families and friends kindly took photographs and cheered for all of our runners at miles 3, 12, 21 and 25, giving them the extra boost they needed to keep going. CRY volunteers were based near the finish area, to welcome our runners and offer them a drink and snack whilst they waited for the CRY shuttle service to take them back to the post-race reception. The first CRY runner to cross the finish line was David Lock who finished in 02:58:13, while the first CRY runner back to the hotel was Keith Preedy, finishing soon after in 03:04:57.

As the afternoon progressed, runners gradually started trickling back to the hotel. Staff members shuttled CRY runners from the finish to the hotel, where each of them were welcomed with well-deserved cheers and applause. They were then checked in by volunteers, offered a CRY medal, photographed by CRY staff and offered plenty of refreshments. The main reception room was buzzing, filled with runners, families and friends sharing their experiences from the day. It was a pleasure for CRY staff to meet everyone and thank them for their incredible efforts. The runners were taken to the massage suites where the therapists helped to relieve their aching muscles, followed by a warming shower in one of the bedrooms that had been reserved for CRY runners only. Thank you so much to the runners and supporters who were able to come back to the hotel to meet us. And, of course, a huge thank you to all of our wonderful volunteers: Linda Bilboe; Balbinder Chutti; Andy Clarke; Layla Cooke; Beth Cox; Angela Feeney; Kerry Ferne; Bob Finch; Carol Finch; Ann Fitzgerald; Caroline Gard; Peter Gard; Waverley Grainger; Don Granner; Terry Granner; Phil Harrington; Wendy Harrington; Angel Heart; Jenna Heath; Sarah Holding; Barbara Holland; Jim Holland; Abi Jonas; Pat Jones; Susanne Keen; Claudette Lilliefelth; Rob Lundberg; Alex MacLeod; Narinder Mann; Victoria Marshall; Hollie Montague; Ryan Morley; Grant Nivett; Peter Robinson; Sue Robinson; Suzanne Rowan; Lisa Stepney; Mike Tointon; Chris Turberville; Jackie Turberville; Joe Turberville; John Turberville; Katy Turberville; Lucy Turberville; Samuel Turberville; Ian Wynn; and Ada Zguros.

Issue 78 | January to April 2019

Virgin Money London Marathon 2019 As always, it was a challenging and emotional day for everyone, especially for those who were running or supporting runners in memory of a young person. We are grateful to everyone who has sent in photographs from the day. If you haven’t already done so, please do send any you have to events@c-r-y.org.uk – we will include as many as possible on CRY’s Flickr account in the coming weeks. Thank you to Kendall Cars Leatherhead for providing us with a discount on the hire of the two vehicles used to shuttle the runners from the finish to the hotel – we are very grateful for your support. Finally, we cannot thank each and every one of our runners enough for their time, effort and valued support. Well done to everyone! All of the photos from the day can be viewed in our London Marathon 2019 Flickr gallery here: https://bit.ly/2Ki7OwM

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Virgin Money London Marathon 2019 Ross Kerwood (in memory of Jenny Kerwood) Casey Knight (in memory of Lee Wilson) Tom Ledgard (in memory of Kris Ledgard) Ryan Lee (in memory of Donna Rowlands) Natacha Lennon (in memory of James Phillips) Anne Lock (in memory of her son) David Lock Craig Mason (in memory of Daniel Hughes) Avril Mayhew (in memory of Nial Hamilton) James McBride (in memory of Jack Maddams) Liam McCabe (in memory of Adam Donnelly) Richard McCann (in memory of Paul McCann) Katherine McNamara (in memory of Simon McNamara) Sophie Mendham (in memory of Ben Daniels) Adam Mendham (in memory of Ben Daniels) Nicholas Metcalfe (in memory of Lewis Marsh) Andrew Mitchell (in memory of Rosie Mitchell) Rob Moody Bill Neely (in memory of Katrina Brown)

Issue 78 | January to April 2019

Virgin Money London Marathon 2019 Sarah Osborne (in memory of Jay) Neil Oâ&#x20AC;&#x2122;Sullivan (in memory of Gareth MacDonald) James Peacock (in memory of Graham Harrison) Luke Powell (in memory of Craig Powell) Keith Preedy (in memory of Harry Faulkner and Alex Hubbard) Richard Quin (in memory of Daniel Brown) Simon Richardson (in memory of Stuart Truscott) Naomi Robertson (in memory of James Phillips) Helena Robertson (in memory of Liana Hoyland) Christopher Sanna Emma Sayell (in memory of Jenny and Adam Lambert) Laura Scriven (in memory of James Paterson) David Shaw (in memory of Callum Collins) Robyn Smith (in memory of Anthony Fitzgerald) Vikki Smith (in memory of Oliver Thompson) Terry Sowle Emma Stevenson Phil Sweatman (in memory of Ben Hammond) Pat Sykes (in memory of Paul Sykes)

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Virgin Money London Marathon 2019 Dean Symes (in memory of Fletcher Payne) Lesley Taphouse (in memory of Thomas Demaine) Lenna Thompson (in memory of Nicola Skinner) Lee Tompkins (in memory of Adam Donnelly) Dominic Toms (in memory of Ethan Jones) Daryl Toogood (in memory of Matthew Hughes) Della Tudisca (in memory of Issy Tudisca) Isabel Turner (in memory of Tom Clabburn and Claire Prosser) Matthew Turner (in memory of Tom Clabburn and Claire Prosser) Hannah Ward (in memory of Louise Brignull) Tony Wheatman (in memory of Craig Wilson) Matthew White (in memory of Megan Harding-Jones) James Wilder (in memory of Sara Pilkington) Chris Wright (in memory of Thomas Fleetwood) Megan Wynne (in memory of Emily Rose Dunn) Christian (in memory of Harry Dubois) Andrew (in memory of Harry Dubois)

Issue 78 | January to April 2019

Virgin Money London Marathon 2019

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Our Fundraisers Entries appear in the following section according to when CRY sends written receipt for funds raised. The following fundraising was receipted from January to April 2019.

Corrections

In Memory of

Danielle Rowe

Unfortunately, due to the size of the Update, with so many fundraisers to acknowledge and there being some overlap with memorial fund names, there can occasionally be mistakes. We always strive to enforce new methods to eradicate such administrative errors, but we apologise if you have ever been affected in some way by this.

mistake.

If you see a mistake in the Update or you have any questions, please do not hesitate to contact me at tom@c-r-y.org.uk.

In Memory of

Nolan Foley

Two donations (£1,053 from David Foley, and £378 from Andy Scott) made in memory of Nolan Foley were incorrectly recorded as in memory of Nathan Foley. We apologise for this mistake.

Here are corrections from issue 77.

In Memory of

Charlotte Adams

Genny Sapiro sent in £300 from Mind Body and Spirit Events in Essex.

Caron Coates sent in a donation from Peter Starling, Danielle’s grandfather, raised in lieu presents for his 70th birthday. The total included was incorrect and should have been recorded as £1,200. We apologise for this

received in lieu of floral tributes in memory of his daughter.

In Memory of

Inderjit (Indi) Bachada

In Memory of

David Armor

Ashley Beaumont-Thomas took part in the CRY Heart of Durham Walk 2018 with Debbie and Mark B-T and raised £100 in memory of her boyfriend.

Cat Armor raised £864 through a Someone Special page.

In Memory of

Alan Bain

In Memory of

Carl Ashcroft

• William Smith sent in £125.

Kathy Petty sent in £1,301.25.

In Memory of

Greer Olivia Anne Atkinson

Mr A Atkinson sent in £223.49, representing donations

• Nancy Fergus raffled a handmade Orkney tweed bear and raised £300. •

Lynne Allan sent in £180 raised through a dress down day at Jeff Clark Thompson.

•

Nancy Wilson sent in £4,498.89, including: £3,928.89 from Orkney Young Farmers Association’s Christmas Craft Fair; £570 raised by Charlie at The Masonic through her sweetie competition.

Issue 78 | January to April 2019

Our Fundraisers In Memory of

Esme Rose Balp

Katy Whyte took part in a Tough Mudder and raised £100.

In Memory of

Graeme Bell

• Gemma Cannell sent in £825 raised by the 150 Club at West Denton Fire Station. • Neil, Ian, Jess, David, Brendan, Reece and Scott took part in the Wall Ultramarathon and raised £6,211.01:

In Memory of

Linda Barford

Jody Barford took part in the Great North Run 2018 and raised £835.

“Recently a team from tier 1 capital completed ‘The Wall Ultramarathon’. This consists of running/walking 69 miles of Hadrian’s Wall in less than 24 hours. The team consisted of seven members, and not only did they complete it, but in doing so they have raised over £6,000 for the Graeme (Tinka) Bell Memorial Fund.” Gemma Cannell.

In Memory of

George Barrett

June Deane sent in £1,405, representing donations received in lieu of floral tributes in memory of her father.

In Memory of

Cecilia Barriga

• Mike Fleet sent in £150 raised from the sale of his books. • Mike Fleet sold some signed bookmarks and raised £180. •

Dave Hodgson sent in £100.

In Memory of

Richard Beaumont

Paul Pickering took part in a 72-hole golf challenge and raised £1,772.

In Memory of

Gareth Beckett

Hannah Bennett set up a Someone Special page and raised £210 throughout 2018.

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In Memory of

Richard Belton

Clare Ball sent in £250 in respect of favours for her wedding guests.

Our Fundraisers In Memory of

In Memory of

Kasia Ber

Graeme Blenkinsop

Derek Nicholson completed a skydive and raised £135.

Lesley Bryant sent in £100 to commemorate Graeme’s birthday.

In Memory of

Lucy Boddice and Christian Thunhurst

Maxwell Biles

North Dorset Rugby Football Club sent in £869.37 raised from their Summer 7’s Rugby Tournament and from a non-uniform day at Gillingham School.

Michael French-Lynch took part in the Dart 10km swim and raised £345.

In Memory of

Liz Bones

In Memory of

Ben Birch

Rebecca Harding raised £550 on her Someone Special page throughout 2018.

Adam Birch raised a further £3,339.42 through his Someone Special page.

In Memory of

Jack Boulton

• Josie Parish donated £157.25 raised from a non-uniform day at Avon and Somerset Police.

In Memory of

Caroline Blackman

Mark Reynolds sent in £100.

In Memory of

Steven Blair

• Susan and Hunter Blair organised a Christmas quiz night and raised £1,162. • Susan and Hunter Blair sent in £200. • Susan Blair sent in £180 raised from collection boxes.

In Memory of

Mathew Blease

Steve Blease sent in £200 raised by the Welwyn Garden City Ladies Youth Football Club.

• Robyn Sayers raised £335 through a Someone Special page throughout 2018. •

Sam Pollinger took part in the Great Bristol Half Marathon and raised £115.

•

June and David Boulton donated £1,000:

“The Saltford Golf Club Ladies charity coffee morning was held on 14th March and raised £956.31 for CRY in memory of Jack, and along with other donations this was topped up to a total of £1,000.

Issue 78 | January to April 2019

Our Fundraisers In Memory of

“This is an annual event and is always well supported by the golf club and the local community. Each year different charities are chosen by the ladies section and we were very pleased that CRY was chosen as one of the three charities this year.” June Boulton.

Ian Bowen

• Shirley Goldswain made a Christmas cake which was iced by her daughter, Christine, and raised £300 through a raffle. • Frankie Davison took part in Great North Run 2018 and raised £300.

In Memory of

Jamal Bouzid

Chelsea Lee took part in Great North Run 2018 and raised £520.

In Memory of

Thomas James Bovington

Jeremy Done took part in a rowing half marathon and raised £633.70: “I managed my half marathon row in 1 hour 26 minutes 46 seconds which I am really chuffed with. The chap I was up against, Dan, did his run in 1 hour 32 minutes, a PB for him. I hadn’t rowed past 10km before today, so was glad I managed to maintain my pace on what was a very humid morning here in Oman. “My hands are in bits, but my body and legs feel OK today!! We had lots of support for both of us at the outdoor gym and on Dan’s run. All of our colleagues have really got behind this which has been absolutely awesome.”

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In Memory of

Craig Bradley

•

William H Painter Funeral Service sent in £200 raised through GingeFest2018.

•

Matt Hill sent in £2,040.18 raised through GingeFest2018.

In Memory of

Harley Curtis Brandon

• Douglas and Freda Bourne took part in a sponsored 10k walk and raised £495. • Michelle Bourne raised a further £1,144 through her Someone Special page. • Michelle Bourne sent in £100:

“Mark Gibney, along with 10 other friends and colleagues, took part in a charity golf day in the summer, and they kindly donated the £100 raised on the day to Harley’s memorial fund. Thank you so very much to Mark, a colleague of Harley’s grandad Doug, and the other participants for their support: Marc Bitmead, Bill Scott, Daniel Bloxham, Stuart Pooley, Neil McLeod, Jack Harburn, Dan Harburn, Charlie James, James Hardcastle and Graham Harburn.” Michelle Bourne for Mark Gibney.

Our Fundraisers In Memory of

In Memory of

Wesley Bray

Alex Brown

Lucie Bray sent in £400.

Dan Hill organised a Facebook birthday fundraiser and raised £176.83.

In Memory of

Richard Brember

Danny Brown

• Hayley Brember sent in £275.05.

Nicole Walters sent in £330 raised through a quiz night at Sayer Vincent LLP.

• David Forsyth organised a pre-match

lunch at The Old Reigatian Rugby Football Club and raised £680. •

Estee Lauder sent in a matched fund donation of £100 in respect of Catherine Campkin’s fundraising efforts.

•

Farnham Rugby Union Football Club sent in £500.

•

Sarah Carruth sent in £102.37 raised from organising bake sales at the British Red Cross.

•

The Vodafone Foundation donated £350.

•

Gordon Brember sent in £577.22 raised from Havant RFC Ladies Lunch.

•

Peter Spicer took part in the Grand Prix Goodwood Motor Circuit Run and raised £300.

In Memory of

David Brown

• Luke Whiting sent in a £150 donation. •

Laura Pottle sent in a £500 donation from the Hampshire and Isle of Wight Masonic Grand Charity, “Tom Lanton Fund Committee” (right).

In Memory of

Mark Britton

Samuel Britton took part in the Cardiff Half Marathon and raised £550.

Kayla Brown

Perth Grammar School sent in £181.05 raised through various fundraising.

In Memory of

• Judy and Dennis Brookes took part in the CRY Great Cake Bake and raised £1,005.

• Zoe Ashbridge sent in £1,330.07 raised from donating her hair and from a quiz night.

Gregory Brookes

• Steve James donated £200 raised from a lottery game at The Plough in Ratby.

In Memory of

Leanne Brownhill

• Lynne Brownhill sent in a donation of £177.46.

Issue 78 | January to April 2019

Our Fundraisers In Memory of

Jenny Bucknell

• Brian Foley sent in £100. • Dorian Mead sent in £600 on behalf of the Stains Round Table Presidents charity, in memory of his niece. •

Tony Yates donated £500.

•

Bill and Hillary Durrant sent in £2,095, including: £750 representing donations from Whist Drive, raising awareness in The Minister Ilminster and St Bartholomew’s Church, and from Christmas gift money; a further £245 representing Christmas gift money; a £250 donation; £240 raised at the Chertsey Agricultural Ploughing Match; £560 raised from a marmalade and bucket event; and £50 from Ms D Clarke.

•

“They then all return to the village hall to consume more throat lubricant and have soup, hotdogs, apple cake, gingerbread and then sing away until they or I, playing the accordion, start to yawn!!! “You can understand we all drink far too much, otherwise we might have raised more!!! However, we must have to all be barmy, as whatever the weather we go out for this vital night, therefore hoping for another good crop of apples in all our orchards for the 2019 cider.” Hillary and Bill.

In Memory of

Jessie Burke

John Simpson sent in £120 donated in lieu of a retirement gift.

Bill and Hillary Durrant sent in £120 raised at the Chaffcombe Village Wassail Night:

In Memory of

Craig Burling

“The photos show my son-in-law, Dr Tony Yates, kindly taking on the task of ‘King’ for our annual Wassail evening in our local village of Chaffcombe. He is extremely suitable for the post, being tall, with a powerful, resonating voice, which for all the reading etc. is a must. It takes place at some suitable time between Twelfth Night and the 17th January. Here in Somerset it is taken seriously!! Glugging down great quantities of Somerset Cider whilst plodding around the village orchards with lots of people participating. When the ‘King’ has spoken the ritual words, poems etc. to the trees and everyone has sung wassailing

• Lewis, Joe and Tasha took part in the Gosport 5k and raised £157. • Debbie and John in Porthcawl donated £270 raised from a collection.

In Memory of

Jordan Burndred

• Jodie Lowe raised £332 on her Someone Special page throughout 2018. • Nicola Burndred sent in £100 raised from Potters coin jar. •

Nicola Burndred sent in £876 raised from a collection day at Stoke City.

•

Nicola Burndred sent in £148 raised from a raffle at Tribe Dance Academy.

In Memory of songs, the ‘King’ places the slices of toast in trees of his choice, the merry participants then shake their rosemary twigs/leaves which have been dunked in cider (making sure plenty is still left to consume!!) all over the branches and rattle tin cans, blow whistles, bang drums etc.

www.c-r-y.org.uk

Richard Butcher

Sarah Butcher sent in further donations totalling £2,502.30 raised from a black tie event.

Our Fundraisers In Memory of

Nathan Butler

few tears during the speeches and it was a very happy occasion and we all celebrated together.” Angela Butler.

• Angela and Phillip sent in £1,185

raised through various fundraising events:

“We held another very successful screening weekend at Porthill Cricket Club on 30th and 31st March, thanks to the professional and pleasant manner of all the CRY staff. The weekend was organised to coincide with Nathan’s 30th birthday on 1st April and the ECG machine we donated from Nathan’s memorial fund was used during this event. During the weekend we received £560 in donations from grateful attendees which will go towards our screening in March 2020.” Angela Butler.

In Memory of

Nicola Butterell

•

Adam Butterell took part in the Ho Chi Minh to Angkor Wat Cycle and raised £3,825.

•

Christine Kavanagh completed the National Three Peaks Challenge and raised £4,867.74.

In Memory of

Alistair Calvert

Alice (right) and Trevor Wheaton sent in £675 raised from a tombola, raffles and an afternoon of mince pies and mulled wine:

•

Dean and Darcie Pritchard sent in £260 raised in lieu of favours at their wedding:

“I am sending in a donation of £260 from Mr and Mrs Dean and Darcie Pritchard. Dean was a very close friend of Nathan and when Dean and Darcie got married on December 30th 2018 they chose to make a donation to CRY in lieu of wedding favours in memory of Nathan. Myself, Phil, Josh and Hope attended the wedding, along with Nathan’s and Dean’s friends. There were only a

“The money was raised through a children’s tombola, two Christmas raffles at Doveridge Women’s Institute events and an ‘afternoon of mince pies and mulled wine’ at home. There are also donations from friends who are aware of our cause.” Alice and Trevor Wheaton.

In Memory of

Arabella Campbell

Clare Northcott sent in £374.

In Memory of

Euan Campbell

•

Arnold Clark Automobiles Ltd sent in £1,500.

•

Moira Lawrence sent in £3,068.

•

Margaret Waddell raised £2,653.10 through her Someone Special page.

Issue 78 | January to April 2019

Our Fundraisers In Memory of

Andrew Cannon

George Cannon sent in £100.

In Memory of

James Colman

• Clare Perry raised a further £2,435 through her Someone Special page. • Richard Ponsford organised a Facebook fundraiser and raised £115.

In Memory of

Jake Thomas Carney

David and Anne Carney participated in Sober October and raised £150.

In Memory of

Andrew Carter

Mary Thomsett sent in £214.

In Memory of

John Chapelhow

Jonathan Pickup raised £400 through his Someone Special page throughout 2018.

In Memory of

Barbara Chase

In Memory of

Christopher Daniel Connor

Ann Connor organised a coffee morning and raised £353.10: “For the last five years myself, Christopher’s fiancée, gran, aunty, cousins and friends have raised funds in memory of Christopher by taking part in a sponsored walk and/or gathering sponsorship. We do this around the time of his birthday. “This year I was unable to do the walk so we decided to have a coffee morning instead which enabled more people to be involved, including our Christopher’s children, Jack and Laurie. We had family and friends there from age three to 82 years old and one very happy dog because there were plenty of treats on the go!

Andrea Chase sent in £295, representing donations received in lieu of floral tributes in memory of her aunt.

In Memory of

Michael Clarke

Deborah Dixon forwarded a donation of £300.

In Memory of

Jane Maxine Coe

Ann Armstrong sent in £200.

www.c-r-y.org.uk

“We received donations of raffle and tombola prizes, and we baked pies and cakes to sell. It was a great day and we were delighted at how much we had raised for such a good cause in our Christopher’s memory.”

Our Fundraisers In Memory of

In Memory of

Stephen Connor

Bruce Cousins

• Patricia Connor raised a further £100

• Christopher Williamson sent in £100 in memory of his good friend.

through her Someone Special page.

• Patricia Connor forwarded a donation of £1,831 raised by her friends during a Pantomime Dames walk from Ormskirk to Southport.

• Jackie Cousins sent in £421 representing the proceeds of a comedy night held at the Monkwood Pub in Rawmarsh.

In Memory of

Peter and Elizabeth Cook

Mrs Cook sent in £150 representing donations received in lieu of floral tributes, in memory of her husband, Peter, and daughter, Elizabeth.

In Memory of

Natasha Coomaraswamy

Comedian Clinton Baptiste

St Luke’s & Christ Church, Chelsea forwarded donations totalling £956.20 collected at Natasha’s memorial service.

•

Jackie Cousins sent in £105 raised from a market stall.

•

Jackie Cousins sent in £161.15 raised from her market stall and a collection tin at Monkwood Pub, Rawmarsh.

In Memory of

•

Keepmoat Homes donated £281.88.

•

Rotherham Sitwell Rotary Club donated £250.

Adam Cooper

Joy Cooper-Crippin forwarded a donation of £100 from Mr Nadin.

In Memory of

Freya Cox

In Memory of

Daisy Cope

•

Mike Cox forwarded a donation totalling £718.07 raised from his work colleagues at Paragon.

•

Ralph Bolton and team took part in Chase the Sun and raised £570.

Ben Cope sent in a further £100 raised from taking part in the Blogger Challenge.

In Memory of

Dermot Costello

•

Donal McCarthy sent in £500 on behalf of Portdevon Hodings.

•

Celine Byrne sent in £100.

Issue 78 | January to April 2019

Our Fundraisers •

Katherine and David took part in the Thame 10k and raised £1,330.

•

Judith Hargreaves sent in £150 raised by Gemma, who raised funds by running every day in November.

•

Alison and Mike Cox set up a Someone Special page and raised £14,058.92 throughout 2018.

•

Caroline Goward completed the Lands End to John O’Groats Challenge and raised a further £1,306.

•

Lucy Jones took part in the Brighton Triathlon and raised £5,525.

•

Amelie Wayte took part in an Everest Cycling Challenge and raised £1,465.

•

Bookham Butterflies WI held a quiz night and raised £560.

•

Louise Foster sent in £550.10 raised by the Settlement Singers at their Christmas concert.

In Memory of

Matthew Cragg

• Cobham Rugby Football Club sent in

£550.

• David Fraser raised a further £205 through his Someone Special page. •

Paul and Debbie forwarded donations totalling £884.37 raised through their recent screening event at St George’s Hospital.

•

Philip and Nita Cragg sent in £100 in memory of their grandson.

•

Jacob Oldfield took part in the London to Paris Cycle Challenge and raised £1,390.

•

Paula-Jane Shepher organised a charity fair and raised £670.15.

In Memory of

Charlie Craig

In Memory of

Richard Credland

Jo-Anne Credland raised £485 through her Someone Special page.

In Memory of

Jonathan Crowhurst

David and Mary Crowhurst sent in £770 raised from a quiz night.

In Memory of

Hannah Cubin

Dawn Cubin set up a Someone Special page and raised a further £2,513.20 throughout 2018.

• David Bancroft forwarded a donation of

£150 on behalf of Reverse Delta. CRY was nominated by employee David Haygarth. • Angela Rixon sent in £435 from Mexichem

Chinley. •

Alice Banister sent in £130 raised from busking in Abbeydale Tesco before Christmas.

•

Saint Mary’s Catholic Primary School raised £38.64 by the Class 3 pupils through a cake sale.

•

Hayfield Junior Football Club organised a quiz night and raised £500.

www.c-r-y.org.uk

In Memory of

Dominic Cullen

Rhian and Kyle took part in the Cardiff Half Marathon and raised £240.

In Memory of

John Cunningham

Brian Cunningham sent in £100.

Our Fundraisers In Memory of

In Memory of

Ben Daniels

Jake Dean

• Paul Daniels raised a further £206.22 through his Someone Special page.

• Janine Dean sent in screening donations totalling £250.20.

• Barclays Payroll Giving sent in a matched fund donation of £750 in respect of Peter and Dianne’s Big Heart Bike Ride – Costa Rica. •

Peter and Dianne Mendham sent in £400 raised through their Big Heart Bike Ride – Costa Rica.

•

Robin Baker took part in the Why Not Run challenge and raised £1,466.62.

•

Mitchell Horne took part in the London Mini Marathon and raised £180.

•

Alan Gavaghan donated £100.

In Memory of

• Lauren Dean raised a further £6,176.58 through her Someone Special page.

In Memory of

Thomas Demaine

• Ella-Mae Searle took part in the CRY Great Cake Bake and raised £101.04. • Alan McGregor sent in £500. •

Michaela Giles sent in £174.82 raised from a Christmas jumper fundraising day at Bodmin College.

•

Ann Demaine forwarded donations totalling £1,351.58, including: £505 from Cornwall Council; £130 from Pauline Roadea through selling Christmas crafts; £16.58 from a collection pot; and £700 received from councillors from Liskeard & Looe following requests made for funding from their community pots.

•

Andy and Ann Demaine sent in £3,136.76, including: £400.76 raised from the Polperro Wreckers Concert; £201 raised at the CRFU Ladies game; and £2,535 in donations.

John Daniels

Charlie Daniels sent in £100.

In Memory of

Margaret Davis

Simone Davis set up a Someone Special page and raised a further £280.

In Memory of

Thomas Arthur Day

• Wendy Holden sent in £100. • Harriet Beal took part in the Vale of York Half Marathon and raised £1,123.10 •

Rosalyn Day sent in £2,061, including a further £1,761 raised through her Someone Special page.

•

Shirley Beckett sent £100 in memory of her grandson.

“On the 2nd March, our local Caradon Gig Rowing Club had generously offered to raise a trophy for Thomas Demaine as a memorial to Thomas for the winner of their 3 Rivers race. “There were 86 boats taking part. Teams have to row up the main Tamar River from Saltash Sailing Club (Caradon Rowing Club) to enter the mouth of the Tamar and Tavy rivers and then row down the river to the mouth of the Lynher river (this is the river on which we live) and back to Saltash Sailing Club. “This was won by the Looe men, current world champions. We received donations from each boat and held a raffle, tombola and sale of homemade goods.

In Memory of

“On the 3rd March, local wild swimmer Kate Queally held a wild swim at Kingsand, SE Cornwall, in celebration of her 600th consecutive daily swim after beating cancer.

Naomi De Silva raised a further £1,664.68 through her Someone Special page.

“It was extremely well attended despite appalling weather, and appropriately £600 was raised and donated to

Kevin De Silva

Issue 78 | January to April 2019

Our Fundraisers In Memory of

Adam Donnelly

• Eleanor Webber donated £100. • Julie Donnelly sent in £145.23, including: The George Staples Pub, Sidcup raised £115.23 from collection pots on the bar; £15 from Emma Vaughan in lieu of Christmas cards; and £15 from Julie in lieu of Christmas cards. •

#CRY4TOM.” Ann Demaine. •

Lee Grant donated £100.

•

Michelle Gibbons organised a ‘70s and ‘80s disco at Lanivet Parish Community Centre and raised £790.

•

Edward Shaw donated £100.

•

Bodmin Rotary Club donated £200.

In Memory of

Matthew Dewhirst

• Ellesmere College organised a relay run from the school to the top of Mount Snowdon and raised £232.50. • Adrienne Easterbrook sent in £255 raised from the Nucleargraduate event.

In Memory of

Aaron Dixon

• Vicky Powell-Carden sent in £590.20

raised through Virtual Racing’s ‘Strictly’ Virtual Race. • Jon Wales took part in the Tough Tribe Assault Course and raised £255. •

Deborah Dixon sent in £2,711.25, including: £2,341.07 raised from a collection at the pantomine held at The Grange Theatre in Hartford; and £370.18 from a collection at Stockport Count Football Club.

•

The JD Foundation donated a further £20,000.

•

Groundwork UK donated £875.

www.c-r-y.org.uk

Jed and Julie Donnelly raised £3,545 at the 7th CRY Ball:

“On Saturday 22nd September 2018, the 7th CRY Ball in memory of Adam was held at the Mercure Brands Hatch Hotel. The evening started off with a three course dinner, followed by a speech by Adam’s sister, Sian, telling people how their donations to the memorial fund have been spent – the fund is now at over £100,000. We are grateful to our auctioneer Sandra Clark for persuading people to bid over and above what we expected for the auction items which included a signed Chelsea football, a signed Manchester United shirt, a signed Red Bull racing cap, and a signed vintage world cup 1966 England shirt. There was a raffle with lots of prizes, and then all took to the dance floor until 1am. As ever, we are so grateful for the very generous support of everyone who attended. The evening was a great success and raised £5,240.”

In Memory of

Stephen Donovan

•

Katie Bell took part in the Great North Run 2018 and raised £924.

•

Joe King took part in the Simplyhealth Great Tees 10km event and raised £660.

In Memory of

Harry Dubois

• Nicola Farnsworth, Andy, Fiona and Jamie took part in the North West Tough Mudder and raised £550. • Mario and Debbie Dubois sent in £7,748.93.

Our Fundraisers In Memory of

Emily Rose Dunn

•

Chris Embling sent in £1,133, including: £310 raised at John and Pat Thompstone’s Golden Wedding celebrations in lieu of gifts; £364 from donations and a raffle at Anne’s 60th birthday celebrations; £258 from screening donations; £100 raised from the sale of eggs from Chris’s hens; and £101 raised from a Name the Teddy competition at Angel Wings Floral.

•

Ackworth Junior FC raised £200.

•

Anne and Chris Embling sent in £342.50 raised at their ruby wedding celebrations.

Gordon Dunn sent in £300 in respect of a salt mine trip.

In Memory of

Katrina Eaves

Ian Green took part in the Birmingham Run and raised £1,205.

In Memory of

Marian English

In Memory of

Gareth Edwards

David and Vivien Sadler donated £100.

Mr Holloman sent in £2,500.

In Memory of

Sebastian English

In Memory of

Gary Edwards

• John Bailey sent in £100.

• Hilary Edwards sent in £1,735.38. • Lewis Keenan took part in the Simplyhealth Great Bristol Half Marathon and raised £529.50.

• Chris Crosby took part in Haselmere Hares and raised £410.

In Memory of

Micky Faulding

In Memory of

Rolf Eilers

Lisa Procter raised £1,374 from her Someone Special page throughout 2018.

Traudel Eilers sent in £10,000.

In Memory of

Harry Faulkner

In Memory of

David Elliot

• Helen Vaites raised £3,148 through her Someone Special page.

Nicola Slater took part in the CRY Heart of Durham Walk 2018 with “The Slaters” and raised £200 in memory of her husband.

In Memory of

Rory Embling

• Pam Maskill held a coffee morning and gave a talk in Spain and raised £305.58.

• Andrew Bryson took part in various fundraising activities and raised £4,675.50. •

Julian Craxton sent in £610 raised from the Christmas tournament at Radlett Junior Squash Club.

•

Old Berkhamstedians organised a charity talent show and raised £725.85.

•

Berkhamsted School sent in a £9,000 screening donation.

Issue 78 | January to April 2019

Our Fundraisers •

Andy Little took part in the Emery Little Charity Golf Day and raised £2,499.35.

•

Jamie Luscombe raised £152.50 through having his legs waxed.

In Memory of

Conor Feeney

The Hollybush Pub sent in £160 raised through a collection pot.

•

Janet Wilson at Fosters Financial raised £11,884.01 from various fundraising activities, including cake bakes, theatre and historic walks, bowling and quiz nights and took part in the Three Peaks Challenge.

•

Blackfen School for Girls sent in £200 raised by one of the parents through his Masonic Lodge.

•

Rakesh Chhabra at One Financial Markets Limited sent in £285 raised by Blackheath FC U14’s.

•

Kevin Ryan raised £165 from a parachute jump.

In Memory of In Memory of

Josh Fell

• Richard and Donna Fell raised a further £2,275 from their Someone Special page. • Joe Palmer and Leigh Gawley raised a further £980 from the Hornsea 200 event.

In Memory of

Therese Field

Tara Field sent in £370 raised from a carol concert in memory of her sister.

Elise Fitzpatrick

Kirsty Fitzpatrick raised a further £287.42.

In Memory of

Peter Folwell

• Kaye Folwell sent in £120 raised in lieu of gifts for her birthday. • Royal Mail Charities Trust sent in £740 raised by Kaye Folwell and her colleagues at the Royal Mail.

In Memory of

Michael Fisher

Niall and Erin Bradshaw took part in the Dublin Marathon and raised £2,035.

In Memory of

Anthony Fitzgerald

• Laura Fitzgerald set up a Someone

Special page and raised a further £3,981.64 throughout 2018.

• Marie Fitzgerald sent in a total of £1,360. •

Magda Tageldin raised £263.21 from the CRY Great Cake Bake, selling Christmas cards and a donation.

www.c-r-y.org.uk

In Memory of

Ben Forsyth

• Ian Campbell took part in Enduraloo and raised £3,222.14. • Margaret Strang sent in £200 in memory of her grandson. • Gary Williamson sent in £100.

Our Fundraisers •

Ian, Marianne, Greig, Gillian, Adam and Catherine sent in £150.

In Memory of

•

Stirling Albion Junior Academy donated £5,000.

Ewan Booth sent in £100.

•

Hugh Thomas sent in £1,075 raised by the Edinburgh Road Club through the CRY Race Day at Fife Cycle Park.

•

Debbie Clark sent in £1,096 raised from the ‘First Notes of Spring’ fundraising concert at Musselburgh Congregational Church.

•

Lesley Drummond sent in £1,200 raised from The Vivaldi Fashion event held at Merchant’s Golf Club.

Rocky Gayakaya

In Memory of

Don Geering

Janos Geering took part in the Great North Run 2018 and raised £565.

In Memory of

Salena German

In Memory of

Joanne Fotheringham

• Alex Fotheringham sent in donations totalling £405, including: £350 from the Rotary Club of Ullapool; and £55 from various donations. •

Alex Eaton forwarded a further £2,200 raised by the cadets of 161 (Ullapool ) D/F through The Great Wilderness Challenge.

In Memory of

Jackie German sent in £140.

In Memory of

Josh Gilbert

•

Fran Farmers Ltd organised various events, including bake sales, dress down Fridays and sporting events throughout 2018 and raised £500.

•

CRY Representative Melanie Webster collected a cheque for £1,500 on behalf of Bury St Edmunds Young Farmers raised from the Bury Ball and Woolpit Steam Rally.

•

Mandy Eayrs sent in £1,000 raised from the Cambridgeshire County Show.

Derek Freeman

Sharon Freeman sent in £164.35, representing donations received in lieu of floral tributes in memory of her brother.

In Memory of

Jason Fulton

Andrew Fulton sent in £163.

In Memory of

John Garrigan

Julia Garrigan sent in £583, representing donations received in lieu of floral tributes in memory of her husband.

In Memory of

Susan Gomez

Gorway Men’s Probus Club sent in £250.

In Memory of

Gerald Richmond Goodfield

Mr G Goodfield sent in £360, representing donations received in lieu of floral tributes in memory of his father.

Issue 78 | January to April 2019

Our Fundraisers In Memory of

Ashley Goodwin

Linda Goodwin sent in £130 raised from plant and Ebay sales.

•

Wendy Griffiths sent in £2,656 raised from a charity race and raffle at Witham Town Football Club.

•

Linda Bateman sent in £396 raised from a race night at Witham and District U3A.

•

Leon Griffiths sent in £175 raised through his sister Corinne Shelly’s 60th birthday in lieu of gifts.

In Memory of

Matthew Gore

Santander sent in a matched fund donation of £370.20, following a dress down day organised by Stacy Bates.

In Memory of

Jordan Grant

• Mark Tipping sent in £2,273.50 raised from the Tipping’s charity Christmas lights. • Students and staff at Cardinal Newman College raised £828.47 from a Santa Stroll.

In Memory of

Matthew Griffiths

Frances Griffiths sent in £100 in memory of her grandson.

In Memory of

Robin Hails

•

Stephen and Elizabeth Hails sent in £275.60 representing donations received in lieu of floral tributes and a further donation of £100 in memory of their son.

•

Steve, Elizabeth and Ben Hails sent in £100.

•

Alison Cook sent in £100.

Thomas Greenwood

Megan Rathbone took part in the Sandstone Trail Walk and raised £1,015.

In Memory of

Shamil Hamid

Naheed Patel sent in £100 on behalf of Gulf News, Dubai.

In Memory of

Stephen Gregory

Patricia Nelson sent in £100 raised from a cake sale.

In Memory of

Francis Hamlett

In Memory of

Oliver Griffin

Charlie Hamlet took part in the Ironman Triathlon in Dun Laoghaire and raised £845.

Mr Goldberg sent in £120.

In Memory of

Ben Hammond

In Memory of

Kayleigh Griffiths

•

Leon and Wendy forwarded a donation of £342 raised by Maldon Golf Club.

www.c-r-y.org.uk

• Homewood School and Sixth

Form Centre sent in £350.45.

• Nick, Rosalind and Timothy took part in a 5km Elf Run and raised £385.

Our Fundraisers In Memory of

• Sheralyn and Stephen raised a further £3,938.30:

“We had our third cake fest on Saturday 9th March. This time we held it at Wittersham Village Hall from 10am till 1pm. We had an amazing amount of homemade cakes donated for the day. People could either come along and buy a cake to take away with them, or stay and enjoy eating their cake with a tea or coffee along with friends and family. “We had tables set up for people to sit at and stay and chat. We had a variety of teas available to try which were kindly donated by Kent and Sussex Tea and Coffee Company. Examples would be Roobos, Darjeeling and Lapsang Sushong, along with favourites like Earl Grey and Pluckley Tea. There were around 20 varieties in all. Most people chose to hang around for tea and cake and a chat. “Everyone donated generously, and we’ve had some great feedback from the day. In total the cake sale raised £978, enough to screen almost 20 young people. We are again totally amazed and so very grateful for the continued support for what we are trying to achieve. It means a lot to me personally to feel that we are doing something that keeps Ben’s memory alive while hopefully saving lives in the meantime, to help prevent another family from suffering the same tragic loss that we have endured.”

In Memory of

Kyle Hancock

• Ian and Debbie forwarded a donation of £200 from The Hathersage Association For the Prosecution of Felons. • Gillian Nowell sent in £560.70 raised by St Barnabas Church.

In Memory of

Mark Hancock

Angela Hancock sent in £351 raised by her mum, Anne, through holding various craft stalls.

Thomas Hardman

Francesca Marie took part in the TH96 15k run and raised £602.

In Memory of

Graham Harrison

• Pam Woodcock organised a quiz night and collected donations at Driffield Town Cricket & Recreation Club and raised £377. • Steve Harrison took part in the Great North Run 2018 and raised £482.50. •

Rob Palmer took part in the Great North Run 2018 and raised £482.50.

•

Tom Wilson took part in the Great North Run 2018 and raised £252.46.

In Memory of

Tony Hassell

Helen Saunders raised £1,250 on her Someone Special page throughout 2018.

In Memory of

Jonathan Hayman

• Marion Hayman took part in the Four Trigs Challenge and raised £1,885.50. • Marion Hayman raised a further £1,868.20 from organising the Four Trigs Challenge in Sidmouth:

“On Sunday 10th of February, for the fourth year running, Marion and Robert Hayman organised The Sidmouth Four Trigs Challenge. “Marion said: ‘It had been a wet, blustery week leading up to the Trigs run, but although Sunday started off wet, by the time the runners set off, it was dry and the sun was putting in an appearance. It stayed dry for the rest of the day, although showers were threatening. “‘We were honoured to have Jo Pavey there to start the race and also to cheer competitors on, part way around

Issue 78 | January to April 2019

Our Fundraisers the course. 117 runners left the Port Royal club and three retired on the way. “‘The challenge is a self-navigated run to each of the four triangulation points circling the Sid Valley, with the start and finish at the Sailing Club. This year the route was anticlockwise, with runners checking in first at Weston Cliff Trig point, dropping down into Harcombe valley, then up to Buckton Hill Trig Point. After the second Trig point they dropped down to Sidbury then up to the third Trig point at Fire Beacon Hill. After that, competitors ran down into Harpford woods, then out to the fourth Trig point at High Peak. This tough route is 16 miles in distance and involves 4,000 feet of climb, so is not for the faint hearted.

massage, provided by Kate Truman and Michaela Miller. Tea, coffee and cakes were also available, again for a small donation’. “The event made £1,870.50. This was made up of entry fees and donations. “Marion and Robert would like to thank all the competitors for the spirit in which they ran the race. They would also like to thank Hayman’s Butchers and Ian Winchesters and Sons for sponsoring the race by providing the much needed and appreciated pasties and bananas. A very big thank you must also go to all the marshals, and the ladies in the kitchen, for all their hard work and dedication. This event can only take place due to the good will of the volunteers. “The Sidmouth Four Trigs Challenge has netted £7,279 for CRY over the past five Years.” Marion Hayman.

“‘This friendly and sociable event attracted strong contingents from local clubs Sidmouth, Exmouth and Axe Vale. Competitors also came from Cornwall, Somerset, Hampshire, Dorset, Berkshire and Wiltshire and as far afield as Yorkshire and Derbyshire. “‘The first man home, for the second year running, was James Green from Axe Vale Club in 2 hours and 15 minutes. The first lady home was Elizabeth Kendon from the Met Office Running Club in a spectacular 2 hours and 52 minutes. Under 23’s Samuel Kelly from Exmouth Harriers was third, and Under 21’s Floyd Ratcliffe from The Mile high Running club was fifth.

In Memory of

Dean Henderson

David and Deborah Anderson took part in the CRY Heart of Durham Walk 2018 and raised £155 via online giving in memory of their son.

In Memory of

Thomas Henson

“‘When the runners returned to the clubhouse, they received a well-earned pasty. For a small donation they were able to take advantage of a free 20-minute leg

www.c-r-y.org.uk

•

Nikki O’Halloran sent in £300.

•

Shaun O’Halloran sent in £300 from the Bolsover Fire and Rescue Service.

•

Carole Carpenter sent in £132.50 raised through a raffle at CPL Distribution.

Our Fundraisers who came along and bought those delicious looking cakes. I say looking, as I’m just gutted I didn’t get any cake – I was on the tombola… A big mistake which I hope to put right next time! We, and the management team at the Pillar of Rock, are looking forward to that time very much.” Shaun and Nikki.

In Memory of

Leighane Hersey

Carolyn Hersey sent in £295, including: £143 from a charity raffle; and £152 raised on her Someone Special page throughout 2018. •

Shaun O’Halloran sent in £1,121.97 raised from a bake sale at Pillar of Rock:

“On Sunday 3rd March 2019 we held our very first bake sale and tombola in memory of Tom at the Pillar of Rock, a Wetherspoons pub in Bolsover, Derbyshire. It went extremely well! We were blessed to have a lot of creative and gifted bakers who kindly baked and donated so many lovely cakes to our sale. “When we laid it all out on the tables we got worried that we wouldn’t manage to sell it all; there was so much! We really needn’t have worried, as an amazing number of people turned up and we were rushed off our feet trying to cater to them all.

In Memory of

Matthew Hesmondhalgh

• Barry and Paula sent in £2,339.55,

including: £492.01 raised from their recent screening at Garstang Academy; and a further £1,847.54 in donations: “Hot on the heels of our screening event I am delighted to say that yesterday, 11 February 2019, I sent in a donation of £1,847.54. This was made up as follows: “The Fish & Chip Plaice collection tub – £31.86 “Owd Nell’s collection tub – £16.91 “Conway Cards collection tub – £50 “Bilsborrow PO & store, five collection tubs over 2018 – £126.17 “£1,480.42 that we have raised was through an extensive variety of small initiatives, including books sold at Kepple Lane Surgery, cakes baked for St. Helen’s church cafe,

“Within two hours it had all gone and we had raised a fantastic £1,116.97, which will be used to support CRY’s core activities of research, screening, support and awareness. “A huge thank you to everyone who helped raise this fantastic sum of money: the bakers, the helpers, the management team at the Pillar of Rock for very kindly letting us use their premises, and to all the lovely people

Issue 78 | January to April 2019

Our Fundraisers In Memory of

pop-up sales, donations in lieu of Christmas gifts, and many more activities.

Laura Hillier

• Tony Hillier sent in £170, including: £60 from a coin collection from Mr and Mrs Hoare and family; £10 from Jonathan and Penny Taylor; and £100 from Mr M Wrexford raised from a collection as part of an annual pre-Christmas sleigh ride.

“Choir 1 raised £142.18 at their lovely carol singing event held in Booths, Garstang. We have had a lovely year as their chosen charity for 2018 and are very grateful for all the support they have given us and CRY. The previous photo was taken at the event. “The photo below is of the cheque presentation at Blackpool Sixth Form College.” Paula Hesmondhalgh.

•

Tony and Joan sent in £410 raised from donations from friends and family and from a talk given to Milton Malsor Historical Society.

In Memory of

Lloyd Hills

Patricia Hills sent in £1,300 representing donations received in lieu of floral tributes.

•

Paula Hesmondhalgh sent in £790 as sponsorship for Michael Coleran’s Isle to Isle Bike Ride.

In Memory of

•

Nathan’s Wastesavers donated a further £120.

•

Loyal City Lodge No 4839 sent £200 in sponsorship for Michael Coleran’s Isle to Isle Bike Ride.

Jane Turner sent in £200 to commemorate Andrew’s 40th birthday.

•

Blackpool Sixth Form College raised £5,539.73 through a variety of staff and student led events.

In Memory of

Robert Heyes

Eleanor Battel set up a Someone Special page and raised a further £363 throughout 2018.

Andrew Holcombe

In Memory of

Charlie Holden

• Paula Doyle sent in £170 raised by The Demo at a recent gig. • Ellie Gregory sent in £101.

In Memory of In Memory of

James Hick

• Maria Jones raised £255 from a raffle at MJ Acting Academy & Casting Agency. • Jeanette Walker sent in £122.50 raised at a Christmas raffle by Sulzer RES / PPR. •

The Mirfield Free Grammar School raised £1,047.30 from a charity football match.

www.c-r-y.org.uk

John Holland

John Holland sent in £275, representing donations received in lieu of floral tributes in memory of his father.

In Memory of

Nicholas Holland

Gemma Holland sent in £160.

Our Fundraisers In Memory of

In Memory of

Lauren Holly

Liana Hoyland

Lyndsay Butler organised open day weekends at Lavendar Fields and raised £1,128.89.

Janet and Peter Wastall sent in a £100 donation in memory of their grandaughter.

In Memory of

Alex Hubbard

In Memory of

Jonathan Hooper

Diane Hooper sent in £122.

•

Sam Barnes completed his 180 miles in nine days and raised £2,028.50.

•

Amelia Deacon took part in the London Walk and raised £340.

In Memory of

Mark Hudson

In Memory of

Francis Raymond ‘Ray’ Hopwood

Barbara Hopwood sent in £100, representing donations received in lieu of floral tributes in memory of her husband.

In Memory of

Sam Hovhannisyan

Karin Rouse forwarded a donation of £537 raised by the Leicestershire Golf Society through their charity golf days and a team event at Kilworth Springs Golf Club: “This generous donation was raised by the Leicestershire Golf Society on two individual charity days and a team event held at the end of the year at Kilwarth Springs Golf Club. With sincere thanks to all the sponsors and also to Maurice Holloway for organising these events. Your kindness is very much appreciated.”

Tracy Cullen donated £100.

In Memory of In Memory of

Stewart Howard

Jane Howard sent in £600 raised from collections at Tesco and other events.

Daniel Hughes

• Bignall End Cricket Club donated £250. • Felicity Good donated £100 in lieu of a Christmas gift in memory of her neice.

Issue 78 | January to April 2019

Our Fundraisers •

David and Susan Hughes raised a further £38,085.30 through their Someone Special page.

•

David Hughes sent in £11,340, including: £1,340 in donations; and a further £10,000 from the Unite Union Derby.

•

Mark Langley took part in the Land’s End to Bignall End Cycle challenge and raised £662.

In Memory of

•

James Dawson sent in £150.

•

Pupils at Pennthorpe School in Billingshurst raised £746.56.

In Memory of

Thomas Jeffrey James

Mr A Jones sent in £300, representing donations received in lieu of floral tributes in memory of his father.

James Huxley

Alysa Freeman took part in the third annual Hux Crux Challenge and raised £1,215.

In Memory of

Mali James-Mitchell

Meinir James took part in the Cardiff Marathon and raised £6,213.

In Memory of

John Ibbotson

Sue Ibbotson sent in £696.79.

In Memory of

Charlie Ibrahimi

• Cathy Ibrahimi sent in £5,000 raised from a Ceilidh. • Maya Dunlop completed a skydive and raised £1,200.

In Memory of

Michael Ince

Joe Bailey sent in £210 raised from releasing music written by Mike and Joe.

In Memory of

Mike Kendall set up a Someone Special page and raised £2,310 throughout 2018.

Camilla Irvine

George Irvine raised £805 from a 10k Mud Run.

Jane Kendall and Jessie Francis

In Memory of

Reece Jeffrey

In Memory of

Ariana Jahangir

•

Dr Tariq Jahangir sent in donations totalling £590.01 in memory of his daughter.

www.c-r-y.org.uk

• Derbyshire County FA donated £125. • Adam Shepherd sent in £651.43 raised by AFC Chellaston through football tournaments held for CRY in 2017 and 2018.

Our Fundraisers In Memory of

In Memory of

Deb Pallace raised £960 through her Someone Special page.

Mrs Boyes sent in £375.55 representing donations received in lieu of floral tributes in memory of her mother.

Kyle Jenkins

Elizabeth Copeland Jones

In Memory of

Ethan Jones

Lucy Adena Jessop

Keith Weston sent in £622.61, including: £420 raised through his talks; and £202.61 raised from a collection pot.

Tracy Jessop-Thompson sent in £105.90 raised from family members.

In Memory of

Eleanor Keeler

Stevie Jivani

Tadcaster Grammar School raised £411.05.

• Nick Loan took part in the Great North

Run 2018 and raised £635.

• Prashan Green took part in the Paddock Wood Half Marathon and raised £484.

In Memory of

Joseph Kellogg

In Memory of

Stevie Jivani and Rob Allen

Melissa Loan took part in the Great North Run 2018 and raised £885.

•

Thom Kellogg sent in £250 raised by Gary Smith and Spondon Cricket Club through a darts tournament.

•

Colin Hunt organised a match day collection at the football game between Mickleover Sports FC and South Shields FC and raised £244.26.

In Memory of In Memory of

Lisa Johnson

• Mary Edwards took part in Mind the Birling Gap Charity Walk and raised £100. • Carl and Eunice sent in £100 in lieu of sending Christmas cards.

In Memory of

James Johnston

Angus Johnston took part in the second James “Jock” Johnston Memorial Walk and raised £1,327.37.

Andy Kenny

CAA Sports organised a quiz and sent in £2,192.55: “Friends, family and colleagues of Andy Kenny raised over £20,000 at The Kia Oval for the inaugural Andy Kenny Quiz Night. The celebration in memory of Andy, organised by CAA, was hosted by radio and television broadcasters and close friends of the Kenny’s, Mark Pougatch and Alastair Eykyn. It brought together 250 people whom were all touched by Andy’s joy and kindness throughout his life.

Issue 78 | January to April 2019

Our Fundraisers •

Jennifer Woods sent in £100.

•

Lam and Birte sent in donations totalling £3,967.95.

In Memory of

Robert Lancaster

“As well as five rounds of sport and entertainment trivia, there was a silent auction and special messages were recorded by Alec Stewart, who shared his own fond memories of Andy’s first tour as a sponsorship executive with the England Cricket team, and Geraint Thomas. All money raised is being shared amongst the two charities selected by Andy’s family: CRY and the General Intensive Care Unit at St George’s Hospital. CAA and Andy’s Family would like to thank all those who have supported thus far.” Sport Industry Group.

In Memory of

Harry King

Samantha King donated £100 in memory of her son.

In Memory of

Margaret Lancaster sent in £220 raised from a shooting syndicate.

In Memory of

Michael Land

• Wakefield & District Housing Ltd (WDH) sent in £300. • Allen Haywood sent in £700:

“The A1 Football Factory held their annual 5-a-side football tournament, where 20 teams competed for the Michael Land Memorial Plate. Team A1 were winners of this event. A great day was had by all. We raised £700 for Michael’s memorial fund. Co-owner Paul Green, who is a professional footballer with Crewe Alexandra, and Frazer Land, Michael’s brother, competed in this well attended event. Dale Skelton, Health and Safety Manager from Multifuel Energy, donated a defibrillator to the A1 Football Factory.”

Judith Krish

Jonathan Krish sent in £250 in memory of his daughter.

In Memory of

Rishi Kukar

Parvin Kukar sent in £250.

In Memory of

Jannik Lam

• Burston Garden Centre sent in £630, including £410 from their Christmas grotto.

www.c-r-y.org.uk

• Ruth Cain sent in £600 raised from a fashion show:

“A fantastic night was held in Raising Awareness Week in November 2018 in memory of Michael John Land. Suzi’s Boutique held a sell-out fashion show at Pontefract Conservative Club. Everyone enjoyed the evening and the eight volunteer models did an absolutely brilliant job along with Suzi’s volunteer staff and also staff at the Conservative Club. Suzi from Suzi’s Boutique presented me with a cheque for £600 for Michael’s Memorial Fund at CRY.”

Our Fundraisers In Memory of

In Memory of

Rachel Latham held a Facebook fundraiser and raised £180.

• Samantha Hillerby Hair Salon organised a Christmas evening and raised £206.

Carl Latham

Jamie Loncaster

• Peter and Susan sent in £350 in memory of their grandson.

In Memory of

Kris Ledgard

• Nicola Fraser sent in £130. • Sean Maloney raised £105 from his Go Dry for CRY challenge.

In Memory of

Jonathan Leigh

Kristoffer and Sally-Ann donated £300 raised from Armstrong’s Social Club’s Christmas fundraising evening.

•

Graham and Jenny Loncaster raised a further £210 through their Someone Special page.

•

Graham and Jenny Loncaster sent in £336.33.

•

Michelle Hopton sent in £171.10 raised from a street collection during the Father Christmas on the Pond event organised by Swanland Parish Council.

•

Tigers Sports and Education Trust donated £837.

•

The City Health Care Partnership Foundation sent in £500 raised through a piano recital.

•

Robyn Turnbull took part in the Great North Run 2018 and raised £776.80.

In Memory of

Adam Lewis

• Peter and Kim donated a further £200.96. • Peter and Kim donated £12,000 raised through The Adam Lewis Effect.

In Memory of

Dorothy Lowe

Shaun Hoole sent in £115, representing donations received in lieu of floral tributes in memory of his mother.

In Memory of

Joseph Leyland

Martyn Luckett

• Charlotte Leyland raised £1,160.50 from her Someone Special page, throughout 2018.

Becky Merrick took part in the Barnstaple Half Marathon and raised £233.

• Robbie Worthington took part in the Great North Run 2018 and raised £752.

In Memory of

Matthew James Luke

In Memory of

•

Katherine Luke organised Matty’s birthday fundraiser and raised £1,604.65.

Mr Lockett sent in £197.26, representing donations received in lieu of floral tributes in memory of his father.

•

Katherine Luke sent in £190 raised through her Facebook fundraising page.

Ken Lockett

Issue 78 | January to April 2019

Our Fundraisers In Memory of

Alan Lumley

Deirdre Harris took part in the CRY Great Cake Bake, sold Christmas cards and collected donations and raised a total of £760.50.

In Memory of

Andrew Macleod

• Dena Macleod sent in £900, including: a donation of £400 raised from the Stornoway Early Birds cycling 2,018 miles in 2018; and £500 from the Hebridean Housing Partnership in Stornaway:

“£500 donated by the management and staff of the local housing association, Hebridean Housing Partnership (HHP). Each year, the staff undertake various fundraising activities within their workplace. “I was invited to attend the donation presentation along with representatives of another local good cause on Friday 25th January at the HHP offices in Stornoway, each of us receiving £500. They have previously supported us with a donation of £750 in 2014.” Murdo Macleod. •

The Lewis & Harris Youth Council sent in £400 raised through a landscape photography competition among their members (right).

•

Staff at Lewis Crofters donated £130.

•

Muriel Mackenzie sent in £353.35 on behalf of The Nicolson Institute raised by fifth year students holding a raffle.

www.c-r-y.org.uk

In Memory of

Jack Maddams

Tony Eldridge sent in £1,000 on behalf of United Industrious Lodge No 31, in memory of Jack and Brother Philippe Lacamp.

In Memory of

Marie Manhire-Clark

• Jamie Kaye completed a skydive and raised £765. • Bryony Lock sent in £178.50 raised by the Springfit Gymnastics & Trampoline Club in Horley.

In Memory of

Leon Ashley Manners and Ian Bowen

Julie Hatton organised a tombola at Cleveland Centre Middlesbrough and raised £391.

In Memory of

Oliver Marsden

Kevin and Linda Marsden sent in £3,000 raised from the Totnes and District Show.

Our Fundraisers In Memory of

In Memory of

John Marshall

Richard Mason

• Edge Hill University sent in £250.

Val and Roger sent in £100.

• Maureen Marshall forwarded a donation of £1,500 raised from the Michael Vella Skem Athletic Girls Football Tournament.

In Memory of In Memory of

Lewis Marsh

Sam Masterman

Emma Benson at Ella’s Kitchen donated £1,857.

Gill Weston sent in £5,000 from Sandhurst Town Boys & Girls Club.

In Memory of

Claire Louise Mayger

In Memory of

Charlotte Martin

Alan Mayger sent in £250 to commemorate the 10 years since Claire’s death.

Catherine Hayward sent in £100 raised by the students, staff and governors of University College Birmingham.

In Memory of

Pete McAvoy

In Memory of

Dean Mason

• Susie and Fraser Turner took part in the Glencoe Marathon Gathering and raised £618.80.

• Cally Jones raised £205 through donations for her birthday celebrations in lieu of gifts. • Sandy and Mike took part in Ironman Wales and raised £782.

• Rogers Stirk Harbour & Partners Charitable Foundation sent in £1,378. CRY was nominated by Vicki MacGregor. •

Anne McAvoy sent in £3,738.94, including £3,594.94 raised through her Someone Special page and a further £144.

All Wales Truck & Transport Show donated £10,000 raised at the Camarthen Truck Show.

•

Steph Dolan took part in a 300km walk and raised £1,531.70.

•

Mr Hallett sent in £100.

•

Gillian McIntosh sent in £187.95.

•

Landsker Riding and TREC Club donated £650 raised through a competition.

•

Penton’s Haulage & Cold Storage donated £260 raised through a tractor pull.

•

Poku Narberth RFC donated £430.

•

Pembroke Ferry Methodist Chapel sent in £250.

•

Alun and Gwenfair sent in £306.18 raised at a recent screening.

•

In Memory of

John McCall

Janette and Malcolm Pollard sent in £100.

Issue 78 | January to April 2019

Our Fundraisers In Memory of

Paul McCann

Crowland Town FC sent in £232 raised from a Christmas charity match.

In Memory of

Josh Merrick

Elena and Lauren took part in a 10k run and raised £721.50.

In Memory of

Stephen Kelly sent £200 in respect of a screening event.

• Mandy Taylor held a Christmas raffle at her work place, Martin Bower Distribution, and raised £530.

Michael McCullough

In Memory of

James McGowan

Glenn Brown donated £200 in appreciation of a screening for her son.

In Memory of

Steven McKay

• Sharon and David McKay sent in £250 on behalf of the Cookson family. • Rebecca McKay raised a further £220.87 through her Someone Special page.

In Memory of

Ellie McKittrick

Shannon Gessey organised a cake bake and car boot sale and raised £322.93.

Richard Merriman

• Nicola Merriman held a tombola at her work’s Santa’s Grotto and raised £160:

“We had a tombola at my work place and a Santa’s grotto on December 16th and we raised £160. It was a great afternoon. The elves took the children and their mums, dads, grandmas and grandads through the woods to see Santa at his wooden shack – the children thought it was magical!!! I would like to say thank you to Sharon West for organising the event and letting us do the tombola for CRY in memory of our son! It means a lot to us. “Also, my friend Mandy Taylor did a Christmas raffle at her work place, Martin Brower Distribution, and raised £530 for CRY! She has been amazing! She has raised thousands of pounds for CRY and always supports us, she always comes along to our heart screenings! We are so lucky to have such a wonderful, supportive friend like her. It’s humbling!!”

In Memory of

Niall McLennan

George Phimister sent in £100 raised through a Wanstead ‘80s themed charity event at Wanstead Golf Club.

In Memory of

Liam Meadows

Jason Dalla took part in the Berlin Marathon and raised £300.

www.c-r-y.org.uk

Our Fundraisers In Memory of

In Memory of

John Millar

Levon Morland

Kirsty Millar forwarded a donation of £500.

Jeff Morland forwarded £260, representing donations collected by Greta Brown and Elsie Morley.

In Memory of

Neil Miller

Owen Morris

Sandy Miller organised a Turkey Trot at West Berkshire Golf Club and raised £7,221.55.

• William and Helena Dace took part in

cycling the Cardiff Velothon on a tandem and raised £411. • Judith and David Hassey organised a cake sale at a recent screening and raised £1,060.

In Memory of

Rosie Mitchell

Andrew and Rachel Mitchell raised a further £1,805 through their Someone Special page.

•

Simon Mingay sent in £1,993.44 on behalf of the Llanishen Lions RC Junior Rugby team.

•

Bev Sulston took part in a cycle challenge and raised £505.

In Memory of

James Moorfoot

•

George McMahon took part in the Leeds Total Warrior and raised £160.

•

Brandon Fleming took part in the Total Warrior Leeds and raised £178.

•

Elizabeth Cox at East Riding Yorkshire Council forwarded a donation of £628.80 from Hornsea School.

In Memory of

Evan Morgan

Amanda Flanagan sent in £100.

David Moss

• Julie Jackson sent in £147.96 raised from the former Knypersley Victoria U18’s Junior Football Team. •

Desmond Maguire took part in a Ben Nevis Hike and raised £105.

In Memory of

Luke Moss

Yvonne Moss raised a further £705 through her Someone Special page.

In Memory of

Amit Singh took part in the Great North Run 2018 and raised £630.

Colin Mulford sent in £110 from the Addington Palace Golfers.

George Morgan

Paul Mulford

Issue 78 | January to April 2019

Our Fundraisers In Memory of

Andrew Murch

• Alison Edwards took part in the Great North Run 2018 and raised £477.42. • Alastair Cruickshank sent in £1,000.

In Memory of

James Murgatroyd

• Etwall Football Club U10’s sent in £150. • Gary and Rose Murgatroyd sent in

£168.69 raised at a recent screening event.

In Memory of

William Myers

Sean and Anna Collins sent in £750.

In Memory of

Pardeep Nagra

• The Yorkshire Building Society sent in

£1,000.

• Barclays Payroll Matched Giving sent in

£1,000 in respect of the charity gala. •

The Royal Mail donated £1,218.70 raised from the gala ball.

•

Resham Nagra sent in donations totalling £1,310 raised from the gala ball, including: £600 from Zeel Solutions; £150 from CWU Wolverhampton & District Amal Branch; £280 from Marston Brassware Ltd; and £280 from Dehal Meat and Poultry Limited:

Navkiran, Jessica, Jon and Wolverhampton Jolly Catering for providing all the food. This amazing evening would have been impossible without them. We would also like to thank everyone who attended for their support in raising the funds. “Emma Reynolds, MP for Wolverhampton, was present to support CRY and in the past signed the CRY pledge. “Lloyds Bank matched £5,000 and Barclays Bank donated £1,000. “During the evening we had raffle prices. Pardeep’s auntie Sundiljit Gill donated the first prize of a 55” TV. We had a number of auctions during the night which included a signed Wolves shirt. “We held a raffle prizes at the Royal Mail prior to the Grand Ball and donations and raised an amazing amount of £1,448.” Resham Nagra.

In Memory of

Lizzie Nee

• Catherine and Murray Nee sent in £200.

“Our charity event was on Saturday 23 March 2019 at the Grand Station in Wolverhampton. We raised an amazing amount of £12,789. “A big thank you to Pardeep’s brother Kully, Jaya,

www.c-r-y.org.uk

• Cath Nee forwarded a donation of £7,500 raised by the Didsbury Beer Festival. •

Simon Carter sent in £100.

Our Fundraisers In Memory of

In Memory of

Dominic Newton

•

Joseff, Tom and Maelien took part in the Swansea Half Marathon and raised £1,020.

•

Trinity Saint David students held a charity match between the Lampeter and Swansea campuses and raised £146.43.

•

Joseff Edwards raised £8,343.40 through his JustGiving page.

•

Rebecca Merchant sent in £105.

•

Katie Lloyd sent in £134.

Andrew Oliver

• Paul Bass took part in The Wall Ultra Marathon and raised £1,530.17. • Vicky Frankland raised £297 on her Someone Special page throughout 2018. •

Mary Everitt sent in £405 from Elm Ridge Church.

•

Judith Oliver held a craft stall and raised £388.

•

Chris Leverton took part in the Land’s End to John O’Groats challenge and raised £1,200.

•

Whitehouse Funeral Service sent in £400 raised in respect of “The Giving Tree”.

In Memory of

Scott Nichol

Stuart Nichol sent in £120.

In Memory of

Alex Osborn

Jonathan Osborn took part in the Manchester to Blackpool Bike Ride and raised £377.

In Memory of

Andrew Ninham In Memory of

Stephen Ninham sent in £185 in memory of his brother.

Amy Osborne

• Emma Bowe took part in the Yorkshire Marathon and raised a further £100.

In Memory of

Barry and Ellen Nivett

• Miranda Osborne sent in donations totalling £223.23.

Jenny Boag set up a Someone Special page and raised £782 throughout 2018.

In Memory of

Stephen Owen

In Memory of

Richard James Northedge

Derek and Pat Northedge sent in £100.

In Memory of

Kevin O’Flynn

Elaine Roche raised £110 through her Someone Special page.

•

Ben Abdelnoor sent in £446 raised through the Loughrigg Fell Race 2019.

•

Katie Milburn raised £5,010 from her Someone Special page throughout 2018.

In Memory of

Ceri Palmer née Howells

• Alison Howells sent in donations

totalling £357.50 raised at the Cheshire College screening.

Issue 78 | January to April 2019

Our Fundraisers •

Alison Howells sent in £133 raised through a Weleda event.

•

Nicole Gordon took part in the Canterbury Half Marathon and raised £485.

•

Dianne Parr sent in £500 donated by the Leek United Building Society.

In Memory of

Daniel Parry

In Memory of

• Daniel’s work colleagues sent in £406.

Taylor Panton

• James Thompson Lodge 3653 donated £220 raised at a charity night.

Robert and Wendy Panton raised a further £100 through their Someone Special page.

In Memory of

Kevin Paterson

Sarah Parfery

• Aimee Slater took part in the Junior Great North Run 2018 and raised £200.

Patricia Parfery took part in the CRY Heart of Durham Walk 2018 with her sister, Isabel, and raised £220 in memory of her daughter, Sarah.

In Memory of

Alexander Parker

• Patricia Toft took part in the CRY Heart of Durham Walk 2018 with “Team SuperKev” and raised £155 in memory of her son. •

Patricia Toft sent in a £100 donation from St Anthony’s Old Girls.

Heather Green sent in £1,501 raised by Burton Tennis & Squash Club.

In Memory of

Andrew Patterson

In Memory of

• Alex Youngman sent in £155 raised at a Christmas fair and through organising games challenges.

Andrew Parr

• Ruth Lowe sent in £338.52 donated at the Heartbeat screening.

• Kiera Kilgarriff sent in a further £388 raised through her Someone Special page.

• David Lowe sent in £267.88 received from John Wiley & Sons in respect of his book royalties.

In Memory of

James Patrick Patterson

In Memory of

• Bryan Sams organised a raffle at the Campion Old Boys Rugby Club lunch and raised £300.

Christopher Parr

• The Leek United Building Society sent in £100. • Janice Walford sent in £189.80 raised from collection pots at the Lamb Inn Guesthouse.

www.c-r-y.org.uk

• Peter Patterson sent in £100. •

Mr J Kelk organised the Hutton and Shenfield Choral Society annual Christmas Concert and raised £1,341.52.

Our Fundraisers In Memory of

In Memory of

Jenni and David Paul

•

Paul Hanlon sent in £1,500 raised from a darts day.

•

Paul Ewing sent in £150 from Liberton Primary School.

•

Serena Jagpal took part in a skipathon, assault course and 10km walks and raised £140.

•

Rachel Bennett took part in a skipathon, assault course and 10km walks and raised £545.

•

Rachel Duncan took part in a skipathon, assault course and 10km walks and raised £125.

•

Lynne Baybutt took part in a skipathon and 10km walk and raised £165.

Christopher and Steven Phillips

Jane Phillips sent in £400 from the Heart of Weston raised from a coffee morning.

In Memory of

Alexis Phillips-Martin

Jessica Phillips-Martin sent in £470.22 raised through her JustGiving page.

In Memory of

Jake Anthony Pickford

In Memory of

•

Gaye and Paul Pickford sent in £525.

Karen Pearmine sent in £1,030 raised from a quiz night and from a family funeral.

•

Gaye Pickford sent in £2,820.79, including: £2,615.79 raised from a charity event at Abertysswg Workingmens Club; £75 representing donations in lieu of floral tributes in memory of Jake’s grandmother; £30 from friends; and a further £100.

•

Mike Pickford sent in £500.

Adam Pearmine

In Memory of

Jack Pegler

Amy Pegler took part in five half marathons and one full marathon and raised £1,350.20.

In Memory of

Benji Percival

Stephen Flight took part in the Brighton Marathon 2018 and raised £663.

In Memory of

Alex Philippou

•

Christalla West set up a Someone Special page and raised £2,772.54 throughout 2018.

•

Narinder Joshi sent £650 raised from a jazz festival.

Issue 78 | January to April 2019

Our Fundraisers In Memory of

In Memory of

James Pilfold

Alessandro Pomfret

• Helen Kaye sent in £135 in memory of

• Sue, Suzanne and team won a competition at David Lloyd Northwood Leisure Club and raised £120.

her son.

• Ronald Hoensch at Henry Schein Services GMH sent in £180. •

Lyn Yorke sent in £500 on behalf of Henry Schein UK.

•

Esther Harris sent in £500 from Software of Excellence UK.

•

Kathleen Benstead sent in £200.

•

Daniel Isaac sent in £100 on behalf of Wallace LLP.

•

Fiona Brookwell sent in £500 from RPX2 Ltd.

•

Brian Weatherly sent in £100.

•

Matt Travell sent in £100.

•

C Jones at Henry Schein Animal Health UK donated £250.

•

Henry Schein Human Resources (USA) donated £350.

•

SearchFlow Ltd sent in £1,000.

•

Judith Kaye sent in £500.

•

Susannah Lowe sent in £105.

•

Lezlee Baylis sent in £100.

•

Keith Dixon sent in £100.

In Memory of

Sara Pilkington

Peter Spinks took part in the Leigh Valley Half Marathon and raised £700.

In Memory of

Jarek Plewa

Ryan Hogarty raised £2,092.35 on his Someone Special page throughout 2018.

www.c-r-y.org.uk

• Alban’s House, Haileybury College set up a Someone Special page and raised £650 throughout 2018. •

The Moretto family sent in £200.

•

Sandra, Loretta, Tania and families sent in £300.

•

Ray Pomfret sent in £200.

•

Dougal Lyon sent in £237.63 raised by Thomason Removes from their carol singing and through making and selling sloe gin.

•

Catherine Christoduludes sent in £100.

•

Haileybury College sent in £100.

•

Caitlin McCabe took part in the Hailey House’s Marathon Row event and raised £106.62.

•

Elizabeth Bottriell sent in £100.

In Memory of

Richard Ponting

Rita Ponting took part in the CRY Great Cake Bake 2018 and sold Christmas cards and raised £605.48.

In Memory of

Gary Pope

Stefan Porter took part in the Hever Castle Triathlon and raised £550.

In Memory of

James Poynton

Claudia Poynton participated in a five-hour workout and raised £105.

Our Fundraisers In Memory of

Alden Price

AKW Consulting Ltd sent in £1,000.

In Memory of

Linda Pamela Puley

Mrs De Greeff sent in £414 representing donations recieved in lieu of floral tributes in memory of her mother.

In Memory of

David Quinney

Mick and Dot Quinney sent in £1,050 raised from the sale of Mick’s auntie’s jewellery following her death.

Someone Special page. •

Laura Ross sent in £300 raised from a children’s Christmas party:

“On Friday 21st December I held a children’s charity Christmas party to raise money for CRY in memory of Elizabeth Ransom, my niece. The party was a great success and all the children thoroughly enjoyed it. “There were plenty of activities to keep them busy, including DIY Christmas cards and tree decorations, glitter playdough, snowman and snowball game, face painting and glitter tattoos. They even got the chance to visit Father Christmas in his grotto and received a gift.

In Memory of

Olivia Raby

Rebecca Anderson raised a total of £1,547 through her Someone Special page.

In Memory of

Ketan Radia

Vikash Radia sent in £785.96.

“I managed to raise £300 on the day, which I was very pleased with.”

In Memory of In Memory of

Ben Ramsay

• James Ramsay sent in £100. • Laura Wagstaff organised a Christmas fair and raised £105.

In Memory of

Elizabeth Ransom

•

Emma Greensted raised £778.60 through her

Elizabeth and Patrick Ransom

Anne Ransom sent in £650, representing donations received in lieu of floral tributes in memory of her husband, Patrick, Elizabeth’s grandfather.

In Memory of

Claire Louise Reed

• Graham and Anne Hunter sent in £200. • Andrew Reed organised a quiz night and raised £513.

Issue 78 | January to April 2019

Our Fundraisers In Memory of

Alexandra Reid

• Amanda Fields sent in £248 in appreciation of a screening.

In Memory of

Liam Ross

Simon Kerevan took part in the National Three Peaks Challenge and raised £510.01.

• Pam Waite forwarded donations totalling £157 raised from her local Girlguiding Carol Concert held in December and from her ‘open house’ tea and cake afternoon. •

Marsha Raines organised book sales at Kiveton Park Medical Practice and raised £779.14.

•

Roger Sharp took part in the CRY Heart of Durham Walk 2018 and raised £193 in memory of his niece.

In Memory of

Ben Rendall

William Brooks sent in £200 raised by Hardington & West Coker Cricket Club.

In Memory of

Scott Rennie

The King’s School, Worcester, took part in an indoor rowing challenge and raised £1,711.60.

In Memory of

Robert Rowan

• Suzanne Rowan sent in £2,471.50, including: £900 representing donations received in lieu of floral tributes in memory of her husband; and £1,571.50 on behalf of her employer, Ove Arup Partnership. •

Brentford Independent Association of Supporters sent in £382.16.

•

Brentford Football Club set up a Someone Special page and raised £8,404.32.

•

Billy Grant sent in £1,055.09 from Beesotted Brentford raised at the Xmas Bees-Up at Fullers Brewery.

•

Jamie Scott sent in £600 from The Kentucky Club Ltd.

In Memory of

Danielle Rowe

Dani’s Story

In Memory of

Paul Richardson

Ms Richardson sent in £172.20, representing donations received in lieu of floral tributes.

In Memory of

Sian Roger

Whitmore High School organised a Mufti Day during the summer term and raised £2,398.57.

In Memory of

Stephen Rogers

Joanne Johnson sent in £180 raised by the staff at Santander UK - North Shields through a cake sale.

www.c-r-y.org.uk

“On Sunday 8th May 2016, at 6:35am, my husband and I were woken by a knock at the door – it was the police! I was given the worst news possible. I was told my 24-year-old daughter, Dani, had suddenly passed away. I still hear these words over and over in my head – these words will haunt me forever. Suddenly, and with no warning at all, her heart stopped beating. “There was no indication that this tragedy was about to strike and it was a massive shock to everyone. None of us could understand it and we were all struggling to come to terms with it as a family. There were so many emotions and questions. How could this be possible? How can a 24-year-old just slip away with no warning? “We never even got to say goodbye! I was chatting to her on Facebook the day before, and only saw her two days ago. I’d planned to see her tomorrow to choose paint to decorate her flat. She was laughing the other day about being a quarter of a century in two months’ time. How

Our Fundraisers can I be hearing she’s passed away? I kept thinking, ‘why Dani?’

In Memory of

“We were shocked to find out the cause of her death was sudden cardiac death. I didn’t know anything about this and neither did my family, but it’s more common than you would ever think. Every week in the UK around 12 young people die of undiagnosed heart conditions. We found out that due to how sudden it was, thankfully she felt no pain and was completely unaware of anything as she was asleep when it happened.

•

Suzy Driver donated £130.

•

Olivia Saro-Wiwa raised £18,198 through her Someone Special page throughout 2018.

“But we also found out from a charity, Cardiac Risk in the Young, that had she had her heart screened, it would have picked up an issue and something could have been done for her. CRY has supported me so much and with their aims of working to help reduce sudden cardiac deaths in young people, promoting heart screening programmes and funding medical research, I hope that more and more young people can be screened so they don’t lose their lives needlessly. “It’s been important to me and the family that we raised money for this charity, not only so we can tell people about sudden deaths in young people, but most of all to make sure everyone remembers Dani and will continue to do so for the rest of our lives. “Enough money was raised to screen 63 people in July 2019 in her memory, and it’s thanks to the generous donations of various events/fundraisers since 2017 that this is possible. “If you knew Dani, you’d know she was a kind person who never had a bad word to say about anyone. She is missed so much and for me it’s important to talk about her always and to highlight this little-known condition and the charity too. Dani will never be forgotten and by raising awareness and doing the screening day in July, hopefully less families will have to go through what we have.” Caron Coates (Dani’s mum).

In Memory of

Fiona Russell

Daniel Wilson took part in the Great North Run 2018 and raised £433.10.

In Memory of

Dave Sanders

Rachel Inman sent in £100.

Suanu Saro-Wiwa

In Memory of

Kyle Say

Barclays Bank PLC sent in a matched giving donation of £1,000 in relation to Joy Green’s fundraising efforts.

In Memory of

Kevin Sayer

Colin Forder sent in £550.

In Memory of

Mike Scott

Marje Scott sent in £120, including: £45 from Paul and Brenda Robinson in remembrance of Mike’s 40th birthday; and £75 from Ruth Gordon Associates.

In Memory of

Mark Sebba

Anne Sebba sent in donations totalling £13,665 raised at her husband Mark’s memorial service.

In Memory of

Tracey Dawn Sendell

Carla and Dee Sendell sent in £800 raised from the Remembering Tracey Dawn fundraiser.

In Memory of

Matthew Seymour

Kenny and Doreen Seymour set up a Someone Special page and raised a further £8,614.50 throughout 2018.

Issue 78 | January to April 2019

Our Fundraisers In Memory of

In Memory of

Richard Shaw

Evan James Shonfield

Molly, Vic and Wendy sent in £135 raised from a collection box in Wendy’s Barber Shop.

• Nikoletta Farkas-Mills sent in £100. • The Saye/Sele Lodge 309 sent in £100. • Cambria Meridian Lodge sent in £300.

In Memory of

Andy Shearer

In Memory of

Madeline Siddall

Drew Shearer held a pub fundraiser with his band MissusHippy and raised £630.

• Charlotte Laycock sent in £3,000 from

Karian and Box.

• The students of Eckington School raised £575.73.

In Memory of

Carl Shenton

Laura Shenton sent in £335 raised through her Facebook fundraising page.

In Memory of

Teddy James Simmons

Jennie and Tom Rowlingson sent in £310.

In Memory of

Paul Sheridan

• Morag Sheridan raised £15,063.85

through her Someone Special page throughout 2018.

• Morag Sheridan sent in £1,249 raised from

James taking part in the Pedal for Paul challenge.

In Memory of

Aashi Sinha

•

Ravina Bhanot took part in the Royal Parks Half Marathon 2018 and raised £710.50.

•

Tannavi Sharma took part in the Royal Parks Half Marathon 2018 and raised £710.50.

•

The Forest School sent in £1,697.38 raised from a holding a non-uniform day.

•

Mina Goyal organised a charity heart ball and raised £5,735.

Jack Sheriff

Elizabeth Sheriff sent in £106.90 raised from collection pots.

In Memory of

Lyle Smith took part in the Balmoral 10km Run and raised £618.86.

Jennifer Smiley sent in £125 raised from selling homemade stained glass Christmas decorations.

Mark Shinwell

www.c-r-y.org.uk

David Smiley

Our Fundraisers In Memory of

In Memory of

• Christine and Gary forwarded donations totalling £347.64 raised at a recent screening in memory of their son.

Sue Spurling sent in £205.

Ben Smith

• Bannister Preston Solicitors held a dress down day and raised £112.50.

In Memory of

Benjamin Michael Smith

• Team Pink Mohicans 2 took part in the Annecy Challenge, cycling from Rouen to Annecy, and raised £5,000. • Elliott Brothers Limited donated £100. •

King Edward’s School Sixth Form production raised £200.

•

Trojans Rugby Club organised a memorial rugby cup game and raised £2,590.27.

•

Sam Woodbury sent in £200 raised at The Swan Centre, Eastleigh.

•

The Eastleigh Swan Centre donated £200.

Rupert Spurling

In Memory of

David Staff

Rebecca Simms sent in £625 raised from the David Staff Memorial Race, organised by the Darwen Dashers.

In Memory of

Sam Standerwick

Adrian and Debra Standerwick sent in £6,041.75, including: £5,872.32 raised through their Someone Special page in 2018; and £169.43 raised at a recent screening event.

In Memory of

Hannah Stanton

Lily Sharp organised a fundraising day and raised £242.

In Memory of

Robert Daniel Smith

• Natasha Pickering took part in the

CRY Heart of Durham Walk 2018 with “Rob’s Army” – Steven, Stuart, Sarah and Shannon – and raised a total of £803 in memory of her cousin.

In Memory of

Harry Starrett

Mr and Mrs R Starrett sent in £100 donated in lieu of Christmas cards.

•

Matt Rudge took part in the Great North Run 2018 and raised £763.

In Memory of

•

Linda Smith sent in £140, including: £120 from New College Durham Health and Social Care; and £20 from Langley Park Brownie Group.

Dr Anthimos Stergides sent in £736.30, representing donations received in lieu of floral tributes for his wife.

•

Linda Smith raised a further £106 through her Someone Special page.

•

The David Barber Friendly Club raised £570 from a raffle.

•

Hetton Hawks Cycling Club sent in £100.

Christine Almut Gisela Stergides

In Memory of

Lewis Stewart

Investec donated £500 in respect of sponsorship for Graeme Stewart cycling from London to Glasgow.

Issue 78 | January to April 2019

Our Fundraisers In Memory of

•

The Abercarn & Newbridge Inner Wheel Charity donated £100.

Julie Richardson sent in £110 raised from a cake sale at Nuffield Health, Haywards Heath Hospital.

•

Asda, Blackwood sent in £218.19 raised from collection pots in store.

•

The pupils of Islwyn High, Oakdale raised £194.52.

•

The Cross Oak Inn sent in £191.70 raised from collection pots.

•

Asda, Brynmawr sent in £363.65 raised from collection pots in store.

•

Paul Brown ran the Cardiff Half Marathon and raised £450.

•

Karen James raised £500.

Nicola Swaysland

In Memory of

Ivy Taylor

Gemma Bolton raised a further £755 through her Someone Special page.

In Memory of

Ross Taylor

Nick Worsley sent in £200.

In Memory of

Richard Thomas

In Memory of

Suzanne Taylor

Libby and Sam took part in the Berlin Marathon and raised £962.20.

Beryl Ewing sent in £160 raised through her handmade Christmas card sales.

In Memory of

Jack Thompson

• Joanna Lines sent in £100.

In Memory of

• Llara Thompson forwarded a donation of £1,800 raised through the Hayden vs Wilmington Grammar School football match.

Jack Thomas

• June Thomas forwarded donations totalling £1,916, including: £1,500 from Sofa Sofa; £100 from Blackwood Spiritualist Church; £100 from Ferryman Ltd; £95 from Betty’s Boutique; £31 from Jack’s grandfather; £60 donated by Woodfield Park Funeral Home; and £30 from Upper Rhymney Valley Area Housing Office.

In Memory of

Oliver Thompson

• Graham and Cheryle Thompson sent in donations totalling £100.

•

June Thomas sent in £423.59 raised at their recent screening.

•

David and Joan Johnson raised £316 from donations in lieu of gifts at their 60th wedding anniversary.

•

The Masonic Charitable Foundation donated £500.

In Memory of

•

Grant and June Thomas sent in £600 raised from the Taekwondo Championships in 2018.

Portpatrick Golf Club raised £1,050 from a competition.

www.c-r-y.org.uk

• Graham Thompson sent in £600. •

Christopher and Rowena Hodgson donated £370.

William Thomson

Our Fundraisers In Memory of

In Memory of

Chris Thurlow sent in £200 in memory of his brother and nephew.

• Leo and Della Tudisca sent in £1,085, including £785 raised through their Someone Special page in 2018.

Scott and Mike Thurlow

Isabelle Tudisca

• Kirsty McCarthy took part in a skydive and raised £636.

In Memory of

Ryan Tilley

• Dan Baumber took part in a Movember

•

Della Tudisca sent in £1,210.54, including: £1,060.54 raised from a quiz night attended by Councillor Steven Neville from Buckhurst Hill Parish Council; and £150 raised by the Shamblers’ golf day.

•

Knights of St Columba, Chingford donated £100.

•

Terry Austin organised a raffle at 72 Club and raised £280.

•

Anna McGovern raised £150 through her Christmas cake bake evening.

•

John Bell sent in £1,000 raised in lieu of Glenny LLP sending Christmas cards.

•

Deb Barton-Hagger organised a Facebook birthday fundraiser and raised £110.

challenge and raised £620.

•

Tom Dowsing took part in the Leicester Half Marathon and raised £325:

“Tom, who was Ryan Tilley’s football teammate, successfully completed Leicester’s Half Marathon on 14th October 2018 and raised £310 for Ryan’s memorial fund.” Suna Tilley.

In Memory of

Luke Towers

David Hutchings raised a further £1,057.20 through his Someone Special page.

In Memory of

Ashley Trigg

Jeff Bhadesia sent in £200 raised from a makeup stall at the United Kingdom Federation of Majorettes, National Championships.

In Memory of

Jayden Tullett

•

Michael Fear overcame his fear of horses and raised £292.

•

Martin Chambers completed a skydive and raised a further £495.

In Memory of

Vincenzo Vetere

Alex Tough sent in £800.60 raised at the annual fundraising Chinstock gig in St Albans.

In Memory of

Chloe Waddell

• Fiona Waddell sent in £151, representing donations received in lieu of floral tributes in memory of Chloe’s grandma, Marjorie Hodkinson.

Issue 78 | January to April 2019

Our Fundraisers •

Fiona Waddell sent in screening donations totalling £310.93.

•

Lydia Lyons took part in the Wilmslow Half Marathon and raised £385.

•

Altrincham Methodist Saturday Café sent in £200.

•

Altrincham Grammar School for Girls organised a Christmas jumper day and raised £350.

In Memory of

Matthew Wallbank

Steven and Lesley forwarded £105 received from friends and relatives at Christmas in memory of their son.

In Memory of

Lloyd Walsh

Wayne Corcoran took part in the Great North Run 2018 and raised £435.

Martin Wailes

Sue Coombs set up a Someone Special page and raised £1,023 throughout 2018.

In Memory of

Benjamin Walker

• Darren Hillier sent in £330 in respect of organising his Pure Luck League. • Paula Sinnott took part in the Great Eastern Half Marathon and raised £180. •

Prince William School held a presentation evening and raised £188.90.

In Memory of

Paul and Connor Walton

Lorna Walton sent in £230, representing donations received in lieu of floral tributes in memory of her son, Paul, and also in remembrance of her grandson, Connor.

In Memory of

Garth Walker

Neil Ward

Kathryn Walker sent in £1,114 raised from a Crown Green Bowling Competition and golf challenge day.

• Elaine Ward sent in donations totalling £4,193, including: £150 from Pentrich WI; £160 from Barrie and Glennis Underwood (WI calendar sales); £30 from Staveley and Woodthorpe WI; £175 from a raffle at Dronsfield Lodge Freemasons Ladies Night; £268 from Wittington WI; £450 from a Hallamshire Harriers event; £225 from WI calendar sales from L Odell & B Bailey; £30 from Robert Procter’s birthday fund; £785 raised from a recital given by Diane McHarg; £150 in respect of Paul Durant’s Barcelona Marathon; £155 raised from giving a talk; and a further £1,615 raised from selling WI calendars.

In Memory of

Tonia Walker

Jean Coote sent in £100.

In Memory of

George Wall

Aislin Brown took part in the Roseberry Topping Run and raised £225.

www.c-r-y.org.uk

•

Shipley WI donated £140 raised from a talk given by Elaine.

Our Fundraisers In Memory of

Richard Ward

Margaret Ward sent in £168.50 in respect of a quiz night to commemorate Richard’s 55th birthday.

In Memory of

George Watson

• Marie Watson raised £165 on her

Someone Special page throughout 2018.

• Jason and the Tower Brewery team raised

£300 through a 76 Club Soul Reunion. •

Lyn Caple completed a skydive and raised £1,506.

•

Sharon Winters forwarded a donation of £1,000 raised from ticket sales, a raffle, adopt a teddy, a treasure hunt and donations at First Friends PDN Ltd.

In Memory of

Lily Webster

• Melanie and Richard Webster raised a further £2,992 through their Someone Special page. • Melanie Webster, Claire Thompson, Jenni Salt and Ruth Welsh took part in the Thames Path Challenge and raised £1,900. •

Melanie Webster raised £550 from a quiz night.

In Memory of

Neil Wickers

• John Jacklin sent in £2,200 from W M

and B W Lloyd Charity Trust.

• Michael Shaw sent in £320, representing donations received in lieu of floral tributes in memory of his mum, Margaret Shaw.

In Memory of

Stevie Wiggins

• Sheila Wiggins raised £325 from a Christmas concert, raffle and stall. • Christine Abram sent in £300 from The Rotary Club of Preston Guild and £500 from Bailey Financial Services:

“The Rotary Club of Preston Guild donated £300 to the Heartfelt Group in Preston in order to hold a screening in memory of Stevie Wiggins. Christine Abram from Heartfelt was delighted to accept this donation.”

In Memory of

David Wild

Emma Steers raised a further £980 through her Someone Special page.

David White

• Holystone Craft Club donated £118. • Lisa Steel took part in the CRY Heart

of Durham Walk 2018 with “Team HEMAN” and raised £171 in memory of her brother.

In Memory of

Joanne White

Jon Boast raised a further £200 through his Someone Special page.

In Memory of

Chris Williamson

TC Landscapes Ltd sent in £307.87 raised through an Easter coffee morning and Christmas buffet lunch.

In Memory of

David Wood

Theresa Ives sent in £194 raised by Iris Prinn though making knitted items and through customers at the Co-Op Liskeard, Cornwall.

Issue 78 | January to April 2019

Our Fundraisers In Memory of

James Wood

Gill Horn sent in £150 raised at the Broxbourne Tennis Tournament: “Another year has passed by and Broxbourne Tennis Club have once again held a Tennis Tournament in James’s memory with all proceeds going to CRY. This year the club held their parent and child event on Friday 30th November. We had a smaller number attend this year, but nevertheless the children had a great time and everyone says how much they look forward to our yearly event. It is now very much cemented into the club’s calendar. Connor and Nick were the winners this year, with James and Cameron coming a very close 2nd.”

from a fundraising evening. •

Southport and District Flower Club sent in £800.

In Memory of

Louise Worth

Students at Elizabeth House School undertook an enterprise project and raised £176: “As part of their Preparation for Working Life programme of study, the students at Elizabeth House School undertook an enterprise project and selected CRY as the charity to receive the funds raised. The boys made sock snowmen and advertised these for sale to the other schools in the group. This event was a great success and raised £176.” Sue Jarvis.

In Memory of

Sam Wright

• Paul and Katrina Paling sent in £100 in lieu of sending Christmas cards.

In Memory of

Amanda Woodruff

Stuart Woodruff sent in £2,452.90.

In Memory of

Seth Woolley

Liz Ovenden raised £155 through her Someone Special page.

In Memory of

Robert Worboys

• Alison Quaile sent in £388.26 raised from a Mufti Day at Bedford School. • Tim and Jackie Worboys sent in £100 raised

www.c-r-y.org.uk

• FSi Ltd donated £250 in lieu of sending Christmas cards. •

Lorraine Huggins sent in £265, representing donations received in lieu of floral tributes in memory of her mother, Sheila Gwendoline Ledgard.

•

Jonjo Beal took part in a White Collar Boxing challenge and raised £220.

•

David Lear sent in £500 raised through fundraising at Horninglow & Eton Parish Council.

In Memory of

Michael Yendall

• Misha Brown took part in the Great North Run 2018 and raised £395. • Alan Brown took part in the Great North Run 2018 and raised £395.

General Fundraising •

Anna and Sophie Aristodemou took part in the CRY Great Cake Bake 2018 and sold Christmas cards and raised £552.27.

•

Jake Callingham took part in the Team Iron Man and raised £275.

•

Arlies Primary School sent in £25.20 raised from their nativity collection.

•

Dr Rhiannon Carpenter sent in £419.35 donated by Turtle Tots South West Wales Ltd.

•

Gemma Armstrong took part in the London to Paris Bike Ride and raised £1,275.

•

Ian Carrie, Jim, Richard and Dave took part in the 4 Men in Lycra Coast to Coast Cycle and raised £1,310.10.

•

Ashlyns School sent in £133.75 in respect of their First Give scheme.

•

Steve Catling sent in £875 raised from a ladies night in Stratford Upon Avon.

•

Shannon Barton sent in £200 on behalf of WorldFirst UK.

•

Christine Bather sent in £271.04 raised from a fashion show held at Tannery Court.

CBRE UK Charitable Trust donated £250 in relation to sponsorship for Andrew Stacey’s cycle from Paris to Cannes.

•

Sandra Beedle sent in £292.78 raised from fundraising at Castleford Park Junior Academy.

Chessington Methodist Church raised £700 from a winter fair.

•

Choice of Scandinavia sent in donations totalling £609.

•

Cat Beck took part in the Sheffield 10k and raised £167.08.

•

Bedford School sent in £180.

Christleton High School sent in £826.37 raised from various fundraising activities.

•

Daniel Benmore took part in Giffgaff’s Ride and Stride and raised £170.

•

Christ Church Students Union sent in £272.05 raised from a casino night with the men’s cricket club.

•

Berkhamsted Motorcycle & Car Club sent in £500 raised from a charity motorcycle trial.

•

The Church in Hope Street sent in £100.

•

Andy Bird sent in £100.

Anna Clarke took part in Giffgaff’s Ride and Stride and raised £202.30.

•

Bishops Blue Coat C of E High School sent in £364.95 raised by students from holding a non-uniform day.

•

Ben Clayton took part in Giffgaff’s Ride and Stride and raised £200.

•

Libby Coe took part in Insane Terrain and raised £550.

•

Maud Black sent in £800 from the Tynan and Armagh Hunt.

•

BNP Paribas sent in a matched fund donation of £250 in relation to Mr S Hayes’ fundraising efforts.

Contracting Management Development Ltd sent in £500.

•

Co-Operative Group Ltd sent in £400.

•

The Borno Foundation sent in £222.13.

•

Lynn Brannan sent in £171.44 raised from a bag pack.

Colchester Hospital organised an International Restart a Heart Day and raised £147.01.

•

Lynn Brannan sent in donations totalling £292.76.

Dani Colley sent in £500 on behalf of TJX UK Foundation.

•

Claire Brooke sent in £100.

•

Richard Brown took part in a Coast-to-Coast Walk and raised £177.50.

Diane Collings sent in £500 raised by Caversmill Drama Society who performed two one-act plays written by a local playwright; and from holding a raffle at the event.

Issue 78 | January to April 2019

General Fundraising •

Janet Collins sent in £122 raised by Woodford Friends and Neighbours.

•

Matias Costa-Tirado took part in Giffgaff’s Ride and stride and raised £100.

•

Rachel Collins completed a Channel distance pool swim and raised £401.

•

Ronnie Cox took part in Giffgaff’s Ride and Stride and raised £425.

•

Laura Cook forwarded a donation of £750 raised by the Peterhead Rugby Club at a masquerade ball:

•

Reverend Brian Cunningham sent in £400.94 raised from collections in the Oundle School Chapel.

“In October we (Peterhead Rugby Club) held a masquerade ball in order to raise money for both the charity and club funds. We chose to do a masquerade ball as it was something different for a fundraising event and would surely be lots of fun.

•

Laura Curruthers took part in Giffgaff’s Ride and Stride and raised £160.

•

Chris Dando sent in £340 raised throughout the skittles season.

“The night went off without a hitch. Everyone had a fantastic time and, thanks to many kind individuals and businesses, we were able to raffle off some fantastic prizes that raised lots of money. It was the first event like this that the club has organised and after months of organising and preparation we were delighted how it all turned out and that we managed to raise a good chunk for the charity and hope to do more in this coming year.” Laura Cook.

•

The Dane Partnership sent in £400.

•

Robert Darke took part in the Great North Swim and raised £811.

•

Adam Davidson sent in £5,500 raised from the 2018 Hacks v Flack Sport Event.

•

Steven Davidson sent in £100 raised through his 60th birthday.

•

Steven Davidson celebrated his 60th birthday and donated a further £1,715 in lieu of gifts.

•

Sam Davies sent in £106.93 raised at a pub quiz by the University of Birmingham EPS Trophy Team.

•

Neil Dawson sent in £100 on behalf of Notts and Derby Unite retired members.

•

Steve Dawson took part in the Coast-to-Coast Bike Ride and raised £1,129.99.

•

Hannah Dickinson sent in £2,250 on behalf of Simpson Millar Solicitors LLP.

•

Roz Donnelly at The Premier League sent in £2,000 in lieu of sending Christmas cards. CRY was nominated by Matt Green.

•

Dorset Gardens Methodist Church sent in £343.55.

•

East Midlands Academy Trust raised £342.94.

•

Eaton Park Residents Association donated £300, presented to CRY Representative David Hughes.

•

Ecclesiastical donated £1,000.

•

Edinburgh University organised a Hare and Hounds Ball and raised £1,743.

www.c-r-y.org.uk

General Fundraising •

Emersons Green Running Club held a Light up the Night event and raised £295.

•

Neil Evans donated £200.

•

Fareham & Gosport School Nursing Team sent in £180 raised from a Christmas raffle.

•

Kim Faura took part in Giffgaff’s Ride and Stride and raised £300.

•

Hannah Field sent in £1,820 raised through a quiz night at Russell-Cooke Solicitors.

•

Claire Finn and her team took part in the Yorkshire Three Peaks Challenge and raised £504.90.

•

Edward Fisher donated £100.

•

Leigh Fisher organised a raffle and raised £1,000.

•

Ian Fletcher organised a charity event and raised £126.

•

Susan Folks donated £100 as a thank you for her children’s screening.

•

Sue Fox sent in £150 raised at her birthday party.

•

Alastair Gill took part in Giffgaff’s Ride and Stride and raised £149.

•

Cliff Gray took part in the G in The Dark 2 Festival and raised £175.

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Great Smeaton Young Farmers Club sent in £1,515.94 raised through various fundraising.

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Alex Green took part in Giffgaff’s Ride and Stride and raised £203.56.

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Mark Griffin took part in the Dragon Charity Quiz and raised £100.

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Ali and Jenni Griffiths took part in the Great Bristol Half Marathon and raised £495.

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Alexander Halliday sent in £500.

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Mary Hargreaves sent in £500.

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Michelle Harris sent in £500 from Chigwell Business Group and a total of £1,503.41 from Wanstead Business Network raised from a charity disco:

“Wanstead Business Network (WBN) supported the event and all members with either a service or product to offer enthusiastically gave their time and products to ensure this event would be memorable, successful and fantastic. In addition, a £500 donation was given from Chigwell Business Group (CBG) and Epping Forest Business Group (EFBG) were also involved. “Wanstead Golf Club was the perfect venue for the event and they too were very supportive, especially as WBN are based from their beautiful and highly-respected club.

Event coordinators Lucy, Janet, Michelle and Carina Copyright: Keith Gold Photography

“As DJ Ray worked his magic and Keith Gold supported, with extra donations raised through photographs being produced on the night, the floor bounced as everyone reminisced their disco moves as if transported back in time. Michael Jackson, Status Quo, Queen, Abba – everyone knew the words and sung until hoarse. Spritely and energetic throughout the evening, although limping out with a few aching muscles at the end, everyone was still smiling, laughing and singing under their breath… Then lighting up Facebook with photographs from the event to keep the momentum going… “Special thanks to Wanstead Golf Club, and a special thank you to Fish Media for the publicity.

“It was party time 1980s style at Wanstead Golf Club as part of a planned initiative to raise money for CRY.

Issue 78 | January to April 2019

General Fundraising “A representative from CRY attended the event and spoke briefly about the charity and how they work through screenings conducted either at St George’s Hospital or via their mobile vans. Everybody present was absolutely aware of the event’s purpose and why support is needed to help save lives and to support bereaved families.”

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Lowri Jones took part in a dance show and raised £1,103.29.

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Lowri Jones took part in an eight-hour dance lesson and raised £354.20.

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Richard Kalwarczyk took part in Giffgaff’s Ride and Stride and raised £160.

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Sundararaju Kanakaraju took part in Giffgaff’s Ride and Stride and raised £130.

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Katie, Ceri and Ruth took part in the Gung Ho 5K Obstacle Course and raised £133.

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Thomas Kelly and Thomas P took part in the Potters Arf Marathon and raised £275.

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Dominique Lambert and Hannah Young sent in £385.76 collected from colleagues.

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Tanya Lambert and her colleagues at Howdens Joinery office took part in the CRY Great Cake Bake and sent in £401.

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Helen Lamble sent in £100 on behalf of her work colleagues.

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Laura and the team at Encore Personnel donated a further £3,471.75 raised from their fundraising in 2018.

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Nicola Lawrence sent in £100.

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Billy Lewin took part in the Royal Parks Half Marathon 2018 and raised £1,000.

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Sarah Harvey took part in Giffgaff’s Ride and Stride in 2018 and raised £200.

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Alex Haynes sent in £921.50 raised at Aldrich & Company from their Christmas concert.

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Jamie Heels took part in the Durham City Run and raised £125.

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Varun Hege took part in Giffgaff’s Ride and Stride and raised £100.

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Rachael Henderson took part in the Lisburn Half Marathon and raised £340.

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Alison Hill sent in £100 raised by St Osyth W.I. Drama Group.

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Maggie Hirsch forwarded a donation of £247.97 raised by Croken Active Retirement Association holding a ‘bring and buy’ sale and raffle.

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Paul Hopton at Legal & General Group Plc forwarded a donation of £171.10.

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Pradeep Hosur took part in Giffgaff’s Ride and Stride and raised £105.

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HSBC Bank PLC sent in £1,000.

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Woolly Hugs sent in £1,150 raised from an online Christmas craft sale.

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Martina Lewis sent in £108.10 raised from a collection pot.

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Gareth Hughes took part in the Richmond Runfest Marathon and raised £642.

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Jane Llewellyn took part in the Great North Run 2018 and raised £605.

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Paul Hulse, Ralph, Mike K, Tony, Mark, Dave, Mike D and Alex took part in Chase the Sun and raised £350.

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Lloyds Bank, Staffordshire sent in £1,000.

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Justin Iveson raised £110 from the Hull 10k.

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Phil James sent in £117 received from the CarTakeBack scheme.

CRY Representative Ruth Lowe collected a £350 donation from Glasdon Group Ltd raised from the proceeds of a staff collection.

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Steven James took part in Giffgaff’s Ride and Stride and raised £206.72.

John Lundy forwarded donations totalling £724.77 raised at a recent Coleraine screening event.

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Canon Edward Jarosz sent in £254.30 raised from a coffee morning at Saint Peter & Saint Paul’s Catholic Church.

Rachel Lynch took part in the Cotswold Classic Middle Distance Triathlon and raised £219.19.

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Theresa Macklin-Smith and her colleagues at The Family Building Society fundraised throughout 2018

www.c-r-y.org.uk

General Fundraising and took part in the CRY Great Cake Bake and raised £705.

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Gopinath Nagarajan took part in Giffgaff’s Ride and Stride and raised £100.

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Mackenzie Madley took part in the Yorkshire Tough Mudder and raised £160.95.

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Nathan’s Wastesavers donated £120.

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Manchester Metropolitan University took part in various fundraising activities and raised £151.18.

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Nationwide Building Society sent in a further donation of £173.26 raised from the proceeds of a DVD sale at the Hanley branch.

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Marks & Spencer PLC, Merchant Square West London, named CRY as their Charity of the Year for 2018 and raised £2,000.

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Neroche Primary School sent in £59.76 raised from their Christmas tree festival.

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Marland School in Torrington sent in £146.32.

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Newcastle & Stafford Colleges Group sent in £124.97 raised through ongoing fundraising activities.

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Kelly Marshall sent in £151 raised from the second Hurst Brownies fundraising evening.

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Peter Nicholson took part in the Junior Great South Run and raised £205.25.

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Heather McAllister carried out fundraising in support of Declan McMullen and raised £146.

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Norton Financial Service Ltd sent in £154.77 raised from a dress down day.

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McClure Solicitors sent in £5,000, in respect of the legacy from Eric William Pomfret.

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Notting Hill & Ealing High School sent in £124.27.

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Lisa McCullough at Ulster Bank Limited sent in a further donation of £1,387.87.

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NRT Carpentry Contractors Ltd donated £250.

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Sheila McGill sent in £106.31 raised from a dress down day at London & Essex Group, Department for Work & Pensions.

Robert Ostler took part in the BVR Elstead Away Run and raised £416.

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Neil Owens sent in £150.

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Rachel Mcleman took part in the Great North Run 2018 and raised £460.

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Sreerama Pantangi took part in Giffgaff’s Ride and Stride and raised £100.

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L McNeill sent in £172.28 raised from a retiring collection at The Parish Church of Saint George the Martyr, Waterlooville.

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Charlotte Peacock sent in £100 on behalf of iStreet.

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Pauline Perkins sent in £100.

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Gautam Mehta took part in Giffgaff’s Ride and Stride and raised £320.

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Ian Pettitt sent in £100.

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Irene Picken sent in £158 in lieu of Christmas cards.

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Met Police - Met Prosecutions, Wilmington held a raffle and raised £534.

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John Pickering took part in the Great North Run 2018 and raised £490.

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Maria Mindak sent in £160 raised by The Shanley Foundation from a weight loss challenge.

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Portsmouth Marine Training sent in £96.50 in respect of CRY Patron Phil Packer’s course fee.

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David Morford raised a total of £1,270 through his BT MyDonate page.

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Gill Morton sent in £100.

Mark Powell and his team took part in the Inspire Community Services National Three Peaks Challenge and raised £1,372.50.

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Patricia Mumford sent in £100 raised from their collection in lieu of sending Christmas cards.

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Matt Powell took part in the Land’s End to John O’Groats cycling challenge and raised £825.

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Simon Murray sent in £100.

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Charlie Prince took part in the Simplyhealth Great Bristol Half Marathon and raised £675.

Issue 78 | January to April 2019

General Fundraising •

Francesca Rackley took part in Gifgaff’s Ride and Stride and raised £230.

was a very hot and a tough run, finished in 2hrs 9mins. Given the conditions, it’s a time I’m very pleased with!

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Ananthan Raguraj sent in £220 raised from his Xmas Jumper - Summer Heat Challenge.

Liverpool Rock n Roll Half Marathon

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Manjeet Rai sent in £100 in memory of his cousin.

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Alastair Raine sent in £1,000 from his village amateur dramatics group (WAMDRAM) raised by their annual panto.

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Nisha Rajput took part in Giffgaff’s Ride and Stride and raised £115.

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Staff at Remington Harrow took part in the CRY Great Cake Bake and raised £160.30.

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Robert Reynolds (right) took part in six half marathons and raised £170.51:

Loughborough Half Marathon “I’m very pleased to have crossed the line in 2hrs 7mins in the first of six half marathons I’m running in support of CRY and five other incredible charities. “I chose CRY after hearing about a colleague, Dave Hughes, whose son sadly passed away in 2015 from an undetected heart condition. His son, Dan, was of a similar age to the best friend I lost to Cystic Fibrosis in 2003, so it really hit home with me! “I’ve since learned about the work CRY does and the endless fundraising that Dave and his family do to provide vital screenings for young people. Running 78.6 miles is worth every step in supporting of such a great cause! Great Northern Run “I completed my second run, the Great Northern Run. It

www.c-r-y.org.uk

“I completed the Liverpool Rock n Roll half in a PB of 2hrs 4mins. Originally from Liverpool, this was the run I was really looking forward to, and it didn’t disappoint; great atmosphere, great support and great weather (if a little hot!). Half way through…! Humber Bridge Half Marathon “I completed the run in 2hrs 1mins 33secs… a new personal best! North Wales Half Marathon “I completed an extremely hilly and even more painful North Wales Half. I got cramp in all my leg muscles at mile six and in some places literally dragged myself over the finish line! Hoping for a much flatter outing in August! Canterbury Half Marathon “I completed my sixth run (round the Kent countryside) in 2hrs 9mins. That’s the six-in-six done.” Robert Reynolds. •

Julian Roberts sent in £1,000 on behalf of ShareGift.

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Holly Roberts-Harry took part in a Rough Runner challenge and raised £1,971.19.

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Rotork Controls Limited sent in £158.33.

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The Royal Bank of Scotland sent in £230.

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Sarah Russell took part in the Solent Half Marathon and raised £300.32.

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Saltaire Primary School sent £134.66 raised through a non-uniform day.

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Andy and Maria Sawko donated £779.

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CRY Representative Val Scott collected a cheque for £462 raised by North Chingford Townswomen’s Guild.

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Samantha Screaton participated in the Ros-y-Events and raised £429.50.

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Adishesh Seshagiri took part in Giffgaff’s Ride and Stride and raised £100.

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Sarah Shaw took part in the CRY Great Cake Bake, Christmas card sales and collected donations and raised £591.50.

General Fundraising •

Santhosh Shiva took part in Giffgaff’s Ride and stride and raised £144.

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Somerville College Oxford sent in £814.50 raised through various fundraising activities.

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Sarah Sotheran took part in the CRY Heart of Durham Walk 2018 and raised £195.

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Keith Staines sent in £100 from the committee and members of the Ardagh Glass 25 Club Doncaster.

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St George’s Hill Golf Club sent in £833.45.

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St Hugh’s College JCR raised £388.22.

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Stoke-on-Trent City Council sent in £154.52.

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Stoke-on-Trent National Citizen Service held raffles and collections and raised £893.25.

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Mr Styles sent in £200.

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Nicky Thompson sent in £1,001.61 raised by Cobra Biologics through various fundraising in 2018.

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Oli and Richard Tillery took part in the Sheffield 10k and raised £315.

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Tillington Cricket Club sent in £300 raised from a bingo evening.

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Rupert Titterington took part in Giffgaff’s Ride and Stride and raised £230.

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Tonbridge Baptist Church sent in donations totalling £516 in respect of their Christmas Eve carol service.

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James Topping sent in £925 raised from a charity boxing match.

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TPC Leadership Ltd sent in £6,250.

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Tring School donated £323.37 raised from the pupils and staff.

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John Turner sent in £284 raised from the Amber Valley & Erewash Athletics Club presentation evening.

“The event raised £1,600 and the Virgin Money fundraiser page connected to the event raised over £2,000!”

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Mary Ward sent in £100.

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Staff on the Ward/Coronary Care Unit at Withybush General Hospital held a cake stall and raffle and raised £700.

Angela Wright organised a raffle at her fitness and fun weekend and raised £425.

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Charlotte Yau took part in Giffgaff’s Ride and Stride and raised £282.30.

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Haines Watts (Bromley Heath Partners) sent in donations totalling £351.54.

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Susan Young sent in £125.04 raised from a guess the toddler competition.

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Mark Webster donated £500.

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Steve Wells took part in Gifgaff’s Ride and Stride in 2018 and raised £200.

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Deborah Winslow at Oubliette Secret Running Society sent in £479.17 on behalf of Glenn Milne.

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Samuel Wood took part in a Work Graduate Challenge and raised £185.35.

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Joan and Garry Woods sent in £260, raised in lieu of gifts for their golden wedding celebrations.

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Colin Woolway raised £1,685 from his birthday music fundraising event:

“On January 24th 2019, Colin Woolway, an internationally acclaimed drummer (who for many years played drums for rock legend Suzi Quatro), had ‘Bit Of A Do’ for his 60th birthday at The Hideaway in Streatham, inviting as many drummers as he could think of, but also combining it with a fundraiser for CRY, inspired by his son’s dilated cardiomyopathy problems.

Issue 78 | January to April 2019

Raising Awareness in the Media Report Between January and April CRY featured in 259 print articles, including 4 national articles and 22 magazine articles. CRY also featured in 195 online articles.

Headlines from January to April in the press... ‘Pitchside heart test saves teen footballer’s life’ Evening Standard Silas Woolway was diagnosed with dilated cardiomyopathy at a routine heart test and had to give up playing competitive football. Now his father, Colin, is fundraising to support CRY. Published 9 January 2019

‘Grieving wife of former Celtic scout aims to start heart screening initiative’ The Scotsman Suzanne Rowan is fundraising for CRY to hold screening events in memory of her husband, Robert Rowan. Published 23 March 2019

‘Championships are centre stage’ Sunday Independent A collection for CRY in memory of Thomas Demaine was held at a rugby match in the Gill Burns Women’s County Championship between Cornwall and Dorset & Wilts, to raise funds for screening in Cornwall. Published 28 April 2019

Online... ‘Dozens of students have free heart screenings’ Daily Echo, 18 February 2019 Sue Fisher has been supporting CRY since the death of her son, Philip Standing, and raised funds for a CRY screening at his old secondary school, The Mountbatten School. Read online at https://bit.ly/2Xgpo6B

‘The hidden killer of under-35s’ YOU Magazine, 3 March 2019 Dr Clare Bailey wrote an article for YOU Magazine about young sudden cardiac death and how important screening is. Read online at https://bit.ly/2JzgoW8

‘Healthy footballer, 18, dies after collapsing on pitch due to “silent killer”’ Mirror, 20 March 2019 Since Jack Riding’s sudden death, his family have been fundraising to support CRY. Read online at https://bit.ly/2UEeTxc

For links to online, press, television and radio coverage related to CRY and young sudden cardiac death visit www.c-r-y.org.uk/inthemedia

www.c-r-y.org.uk

Fundraising Events 2019 Please contact the fundraising team on 01737 363222 or email events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events visit www.c-r-y.org.uk/category/upcomingcryevents All participants in mass-participation events who contact the CRY fundraising team (whether they have their own place or a CRY charity place) will receive a welcome pack containing sponsor forms, information, helpful tips and either a T-shirt or vest (depending on the type of event).

Rough Runner

‘supersonic 10K’ and ‘supernova 5K’.

Rough Runner is an obstacle course like no other; combining distance running (there’s a 5km, 10km and 15km run) with a variety of obstacles along the way, inspired by game shows such as Total Wipeout, Takeshi’s Castle and Gladiators. Expect a punching wall, sweeper arms, big balls and The Travelator!

October 7

Throughout 2019

Parachute Jumps Assorted dates

Simplyhealth Great Bristol Half Marathon

September 15

The course heads under the iconic Clifton Suspension Bridge with views along the Avon Gorge and Bristol Harbourside before entering the city centre.

London Marathon Walk 2019 September 28

Cardiff Half Marathon

Cardiff Half Marathon boasts one of the most stunning 13.1 miles courses around. The route takes runners past the capital’s most iconic landmarks with beautiful scenery and historic buildings. The predominantly flat and fast course makes it ideal for beginners and elites.

Royal Parks Half Marathon October 13

This stunning central London half marathon takes in the capital’s worldfamous landmarks on closed roads, and four of London’s eight Royal Parks – Hyde Park, The Green Park, St James’s Park and Kensington Gardens.

CRY Raising Awareness Week November 16-24

A 26.2 mile movie themed walk around London, taking in some of the capital’s iconic sights and less-visited corners.

Help CRY by holding your own fundraising or awareness event. This is a perfect opportunity to promote the importance of the charity and cardiac screening for young people. All events are welcome!

CRY Heart of Durham Walk

CRY Great Cake Bake

Join CRY for the 10th annual Walk in Durham. The 5-mile route (suitable for all) starts and ends at Durham Amateur Rowing Club and passes along the River Wear and through the beautiful city of Durham.

This is a fun, simple way to get involved in Raising Awareness Week. Get your family, friends, colleagues and children involved in baking, eating and raising money for CRY. And compete to see who will create this year’s showstopper!

Bournemouth Marathon Festival

London Santa Run

October 5

October 5-6

Beautiful coastal views and a chance to run the Boscombe and Bournemouth Piers with a spectacular finish. This event offers a marathon, half marathon,

November 22

December 8

Over 4,000 Santas will hop on their sleigh and make their way to London on a Christmas mission to raise thousands of pounds for hundreds of different, worthy causes. This family-friendly festive

fun run is set to bring a flash of red and Christmas cheer to Victoria Park, London, as Santas from up and down the country tackle the 5km and 10km courses.

Trek Kilimanjaro

Assorted dates, 2020 Kilimanjaro is the highest mountain on the African continent at 5,896m. Its snow-capped summit rises high above the dusty African plains. Spectacular views and beautiful ice formations are the reward for pushing your limits.

London Landmarks Half Marathon March 29, 2020

This is a closed road, central London run. Over 13,000 runners will start on Pall Mall, finish by Downing Street and have fabulous views of London’s most iconic landmarks including Big Ben, St Paul’s Cathedral, Nelson’s Column, the Shard, the Tower of London and the London Eye.

CRY Heart of London Bridges Walk 2020 June 28, 2020

Join us for the 14th annual CRY Heart of London Bridges Walk. This event offers the opportunity to show support for CRY, remember young people, raise funds and help raise awareness.

Big Heart Bike Ride South Africa November 6-14, 2020

Join the next Big Heart Bike Ride in South Africa for a 400km cycle. You will ride through the wonderful lagoon town of Brenton-on-Sea, alongside rivers, rustic villages and even a game reserve. Be sure to look out for some amazing wildlife along the way, including rhinos, zebras and lions! You will finish with a free day to explore the city of Cape Town.

Issue 78 | January to April 2019

CRY Update 78 January to April 2019 Our Fundraisers By fundraising for CRY you will be helping to: • subsidise CRY’s national cardiac screening programme • fund CRY’s bereavement support programme to provide counselling and support to affected families • support research into young sudden cardiac death (YSCD) • develop the myheart Network to support young people living with cardiac conditions • provide all CRY literature and information free of charge • develop the CRY Centre for Cardiac Pathology (CRY CCP), and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology

The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD. Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, sponsor forms and other resources. If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.

For further information please call the CRY office on 01737 363222 or visit www.c-r-y.org.uk/donations All your help is greatly appreciated.

Visit www.c-r-y.org.uk/charityfundraising-challenge-events for more information or contact the CRY office for a fundraising ideas pack.

Our Patrons

Our Mailings

The urgency of CRY’s mission and the quality of our work has compelled many high-profile personalities to give their time to become CRY Patrons. For more information visit www.c-r-y.org.uk/about-us/patrons

Sir Ian Botham OBE

Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.”

Current Patrons of CRY: Rob Andrew MBE • John Barrowman MBE • Jeremy Bates • Ben Brown • Clive Clarke • Jack Clifford • James Cracknell OBE • Nick Easter • Jonny Evans • Baroness Ilora Finlay • Simon Halliday • Kathryn Harries • Michael Hoey • John Inverdale • Tom James MBE • Pat Jennings OBE KSG • Rob Key • Gary Longwell • Pixie Lott • Emily Maitlis • Graeme McDowell MBE • Lee Mears • Bill Neely • Lawrence Okoye • Phil Packer MBE • Sir Steve Redgrave CBE • Vincent Regan • Joe Root • Andy Scott • Roger Taylor MBE • Professor Gaetano Thiene • Gregor Townsend MBE • Andrew Triggs-Hodge MBE • Andrew Trimble • David Walliams • Alison Waters • Matt Wells • Sir Clive Woodward OBE

www.c-r-y.org.uk

There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we also accept credit/debit card donations over the phone.

1. CRY Update magazine Postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Founder; supporters’ fundraising; articles about screening, myheart, research, pathology, raising awareness initiatives, massparticipation fundraising events; and much more.

2. CRY enewsletter Monthly email newsletter; 3 emails per year with links to the online version of the Update magazine; plus occasional emails about major CRY events and initiatives. If you would like to subscribe to – or unsubscribe from – either of these mailing lists, please let us know: • Complete the online form; www.c-r-y.org.uk/subscribe • Call the CRY office; 01737 363222 • Email the CRY office; cry@c-r-y.org.uk

Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD). Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions. These conditions include hypertrophic cardiomyopathy (HCM) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS). CRY aims to reduce the frequency of YSCD through raising awareness amongst the general public and medical community, providing expert cardiac pathology, improving early diagnosis through screening, supporting young people diagnosed and funding research. 1 in 300 young people CRY tests will have a potentially lifethreatening heart condition. CRY believes cardiac screening should be available to all young people aged between 14 and 35.

Registered Charity No. 1050845

CRY also works to guide and support families and close friends affected by YSCD. We provide information to explain what the coroner does, bereavement support, help with NHS referrals and advice on the procedures that usually follow a YSCD. In 80% of cases of young sudden cardiac death there are no prior

We are very proud that over 80p in every £1 we spend goes into supporting CRY’s key aims. Without the fantastic support we receive this wouldn’t be possible.

symptoms of a heart defect. CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge. For detailed information about cardiac conditions and CRY’s range of literature visit www.c-r-y.org.uk/ medical-information

Fundraising Awareness 15% 14% Governance Support 2.5% 7%

Screening 35%

Research 26.5%

CRY is grateful for grants or donations from trusts and foundations. We would like to thank the following for the generous support they have given us:

n io rs ve it: e vis lin e, / on at k e d .u th Up .org e ive RY r-y rib ce C c- c re the w. bs To of ww su

A & R Woolf Charitable Trust • Aubrey Orchard-Lisle Charitable Trust • Borrows Charitable Trust • The Cantiacorum Foundation • Carval Foundation • The Charles Wolfson Charitable Trust • CMS Cameron McKenna Foundation • Cosaraf Foundation • The DMF Ellis Charitable Trust • Doris Field Charitable Trust • The Edith Murphy Foundation • The Elizabeth Bennett Charitable Trust • G C Gibson Charitable Trust • G M Morrison Charitable Trust • The Geoff and Fiona Squire Foundation • James Tudor Foundation • The Joyce Kathleen Stirrup Charitable Trust • The Lady Forester Trust • Leathersellers’ Company Charitable Fund • The Mabel Harper Charitable Trust • The May Gibson Charitable Trust • The Oakdale Trust • The Oliver Stanley Charitable Trust • The Rachel & David Barnett Charitable Trust • The Samuel Storey Family Charitable Trust • The Schroder Charity Trust • The Stanley Grundy Foundation • Tudor Foundation Inc • Vernon N Ely Charitable Trust

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK