As Deputy Editor of the CRY Update it is my responsibility to put together this newsletter, and ambition that you find all the CRY news, events and fundraising in these pages to be of interest.
I always endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to get in touch with me if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section.
I would appreciate hearing from you at tom@c-r-y.org.uk or on 01737 363222 if you have any feedback or comments regarding previous issues. Thank you for your help.
Alison Cox MBE Founder
Professor Mary Sheppard Consultant Cardiac Pathologist
Head Office:
Unit 1140B
The Axis Centre Cleeve Road
Leatherhead
KT22 7RD
No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor. The Editor welcomes letters but reserves the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of Cardiac Risk in the Young (CRY). Articles pertaining to health-related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.
Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more.
Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised.
If you can supply a writeup or photos for any fundraising activities you have taken part in, please email tom@c-r-y.org.uk
Images of CRY Patrons and Members of Parliament throughout have been highlighted in red.
For more details regarding the events shown on the cover, please turn to the corresponding page references below. Images are listed clockwise from top left:
1. Liz Sparks’ fundraising stand selling face masks, in memory of Ben Thorn. Page 35.
2. Face masks made and sold by Beryl Ewing, in memory of Suzanne Taylor. Page 34.
3. James Benson-King’s fundraising challenge, in memory of Alex Hubbard. Page 22.
4. The marathon broadcasting event hosted by Sunrise Radio. Page 13.
5. CRY supporters taking on The Three Peaks Challenge. Page 39.
6. Mia making and selling wristbands in memory of her friend, Jamie-Leigh Rose. Page 32.
7. Amy Kenningham made and sold marmalade to support CRY. Page 39.
8. CRY’s 25 Million Metre Challenge. Page 12.
9. A cheque presentation in memory of Freya Dalrymple. Page 18.
10. A fundraising event held in memory of Catherine Roberts. Page 31.
11. Barwell Motorsport Ltd who completed fundraising in support of CRY. Page 38.
12. Frankie’s walk,
In June 2006, my family and I were on holiday in Center Parcs when my brother Dean, aged just 26, passed away from a cardiac arrest caused by an undiagnosed cardiac problem. It was found that my brother had a slightly enlarged left ventricle and no other issue could be found as to the cause of his death. To say that this was a shock seems a huge understatement as there is no getting away from the fact this changed our lives forever.
After being made aware of Cardiac Risk in the Young and discovering how many families experience what we went through, the charity became a big part of our lives as a family and mine personally. Over the last 10 years we have fundraised and raised awareness of the charity as much as possible.
For me the drive came purely from wanting to prevent as many families as possible from having to go through what we have been through. To try and come to terms with the fact that you’re apparently fully fit and well brother could disappear from your life without notice. A strong indicator for me on the importance of getting the message out there came from thinking about myself prior to our experience, and how I never realised something like this was possible. For a person with no symptoms to pass away with no
warning. I know that at 18 years of age I would have never believed that getting screened for a cardiac abnormality was something I would need to do, being a fit and very physically active person. So getting the message out there that a quick test one weekend to rule out any possible issues, most of which can be controlled or eradicated easily, is so important.
If you would like more information about the myheart network and the support services that we offer, such as the literature we provide and information on different cardiac conditions, you can visit the myheart website at www.myheart.org.uk
There is also the myheart YouTube channel, which includes content such as videos sent in by members sharing their experiences of being diagnosed or undergoing certain tests, as well as myheart cardiologist Dr Michael Papadakis answering a range of frequently asked questions.
Having become familiar with the work CRY do in both preventative measures and also support supplied to grieving families and friends, I wanted to become involved. When you realise that a simple screening could save a life in the space of a 10-minute appointment, it’s a great incentive to get people to take the time to be screened.
We as a family have worked hard to raise money to be able to hold screening events in our area of West Wales. We were also fortunate enough to raise enough money to fund a complete screening unit to be put into circulation. I have grown closer to the charity as a result of this and I am proud to be associated with CRY and their aims.
You can go to the myheart YouTube channel here: bit.ly/2QjiTyl
And here’s where you can find the myheart network on social media: @myheartnetwork
Dr Steven Cox CRY Chief Executive
@Drstevenjcox drstevenjcox
Thank you for everything that you continue to do to support CRY and raise awareness within your local communities. Included in this section are a number of media stories from January to April, as well as information about some of CRY’s events in this period.
February
One of the ways we marked CRY’s 25th anniversary and engaged supporters in Heart Month this February was by introducing a new virtual event: the 25 Million Metre Challenge.
We partnered with CRY supporter and myheart member Tony Eames, who originally created the Million Metre Challenge to raise funds and awareness for the charity. The aim of our new event was to challenge people to collectively cover the distance of 25 million metres from February 1 to May 2.
Supporters could take part as an individual or create a virtual team of 12 and complete metres by walking, running, cycling, rowing or swimming.
The event was a terrific success and we raised nearly £4,000 in the process. From supporters all around the country, to local sports clubs and members of CRY’s staff joining together, the challenge had a great deal of support. In fact, our supporters’ efforts were so amazing that we were able to double the target distance to a staggering 50 million metres!
To read more about the event, turn to page 12.
February
Heather Reid has been supporting CRY since the sudden death of her daughter Alex, who died in her sleep from an undiagnosed heart condition. This BBC feature looked at their story and stressed the importance of taking care of our hearts and minds, while also noting that many screening days have been lost due to COVID-19, resulting in thousands of young people missing the opportunity to have their heart tested in 2020.
“She was just vivacious, just happy,” Heather said. “She was the kind of person that raised your spirits, exuded this positivism. Partly ditsy but very bright, didn’t mind a joke and didn’t mind a joke on herself. Really proud that she was my daughter, is my daughter.”
The Reid family has raised more than £130,000 for CRY, funding the screening of 1,300 young people. Heather is now fundraising by running a total of 624 miles – one mile for every young person who dies each year because of an undiagnosed heart condition. “My way of doing this in lockdown has been what can I do to raise awareness and obviously raise some money for this fantastic charity, CRY.”
I also went on the show to talk about the impact that COVID has had on CRY. We saw fundraising drop to a third of what it was in the previous year, so this has obviously had a massive impact on our ability to raise funds. Our support programme has continued very much as it would have before. We’ve worked very efficiently remotely. We were quite well prepared at the start of the pandemic, but it has had a massive impact.
Since March 16, all of our screenings were postponed which resulted in thousands of appointments being cancelled. Now, over 50,000 people are on CRY’s waiting list to be screened.
We want every young person to have the opportunity to be screened. With awareness being raised through
stories in the media like this and us starting to run our public screenings again this summer, we can start getting back on track.
March 26-27
Sunrise Radio have partnered with CRY since the start of 2020 as part of the charity’s 25th anniversary to help raise awareness of young sudden cardiac death, the importance of screening, and the work we are doing with on-air advertising and interviews.
Their latest major initiative was led by presenter Anushka Arora, who hosted a 36-hour radio marathon which included music, shoutouts, interviews with CRY doctors, families and young people whose lives had been saved by screening, and reminders of why it’s essential to support CRY and raise funds for screenings. CRY Ambassador and singer-songwriter Arjun also joined to show his support. To read more about the event and listen to some of the interviews, including my interview about CRY and how we’ve worked through the pandemic, go to page 13.
April 14
BBC 2 aired a documentary telling the story of Patrick, who lost his sister Lauren when she died suddenly at
just 19 years old. Patrick has struggled to understand how Lauren could have died so suddenly and found it difficult to open up about his emotions to his family and friends. Patrick attended bereavement counselling sessions and was also keen to learn more about what can be done to save other young people and the incidence of young sudden cardiac death, which led to him visiting Professor Mary Sheppard who works at the CRY Centre for Cardiac Pathology.
The documentary highlighted the impact a young sudden cardiac death can have on a family and siblings in particular, and brought awareness to the importance of both bereavement support for those affected by these tragedies and screening to save young lives.
You can watch the documentary on BBC iPlayer. Please note that the opening scene in particular can be distressing to watch and shows the initial phone call Patrick’s family made to paramedics.
April 24
The Spring Zoom myheart meeting was held on Saturday, 24 April. 11 myheart members registered to attend and it was very kindly facilitated by CRY’s myheart cardiologist, Dr Sabiha Gati.
Currently, myheart holds meetings twice a year via the online platform, Zoom, for young people, between 18 and 35, who have suddenly been diagnosed with a lifethreatening heart condition. Anybody with a cardiac condition between the ages of 18 and 35 can come to the meetings if they:
• Have been offered or already have an ICD
• Have suffered a cardiac arrest
• Have been diagnosed with an inherited or potentially inherited cardiac disease
For more information on myheart meetings or if you would like to register for the next meeting, visit www.myheart.org.uk or email the myheart coordinator at myheart@c-r-y.org.uk
“Sudden Death: My Sister’s Silent Killer” documentary
Social media is a vital part of how CRY interacts with supporters and, first and foremost, raises awareness of young sudden cardiac death and what can be done to tackle it – from preventative measures (screening) to bereavement support for those affected by a tragedy. In the CRY Online segment, we look back at the fourmonth period the Update covers and include a small selection of social media highlights, such as Facebook posts that reached an amazing amount of people, or supporters who tweeted memorable photos at us.
CRY’s social media platforms have continued to be an essential way for us to raise awareness of young sudden cardiac death and the work we do through the pandemic.
We gained almost 1,000 followers (“likes”) on our Facebook page in this period, and recorded a fantastic 628,000 impressions (the number of times posts appear on someone’s personal feed) in April alone,
which is the highest we’ve recorded in a single month since 2019. Some of our top posts helped bring more attention to stories in the media. In April, an article was published by the BBC telling the story of Danielle Riley, who suddenly lost her fiancé Andy Key to sudden arrhythmic death syndrome (SADS) when he was just 29 years old. Andy’s parents have received bereavement support from CRY, and Danielle has been doing what she can to raise funds and awareness for the charity. Social media posts like this help raise valuable awareness, too.
A little later in the month, we shared a
link to the BBC documentary “Sudden Death: My Sister’s Silent Killer.” This documentary told the story of Patrick, who lost his sister Lauren when she died suddenly at only 19 years old. It’s so important to highlight the incidence of young sudden cardiac death and the impact it can have on affected families and this documentary did that, which was only helped by the amount it was shared on social media (over 1,200 times via this Facebook post alone).
Our following continues to grow on Instagram, as it’s a great platform for us to share photos from supporters and events, as well as promote new initiatives and work we are doing. In January, this included highlighting CRY’s new 25 Million Metre Challenge, which became a great success. You can read more on page 12.
In addition to sharing photos and promoting events, we can always use Instagram to spread awareness of key parts of CRY’s work. This includes our research and the efforts of our team at the CRY Centre for Cardiac Pathology. To learn more, you can visit: www.c-r-y.org.uk/research
Interacting with us on social media is an easy way to keep up to date with any CRY information you might need. You will receive updates on upcoming events and screenings; and photos from fellow supporters. Every share of a post helps spread awareness about CRY a little further. So, if you’d like to follow along, here’s where you can find us:
CRY’s reach on Twitter continues to grow, with us recording 616,000 impressions in this fourth-month period alone. It’s often a great platform for research to be shared, and CRY’s consultant cardiologist Professor Sanjay Sharma shared a graphic in February that illustrated just how much of an impact CRY’s screening programme has had. The graphic was from the research of former CRY Research Fellow Dr Harshil Dhutia, which showed how many conditions are solely detected by an ECG, how often individuals who have been identified with a condition can receive the treatment they need, and how efficient ECG screening is financially. To learn a bit more about this excellent research, you can go to bit.ly/3reue4q
In March, one of CRY’s supporters Jon Newby shared his story to help highlight the importance of screening. He was diagnosed with arrhythmogenic right ventricular cardiomyopathy (ARVC) and was able to be fitted with the ICD that he needed. Cases like Jon’s just go to show how essential screening is to save young lives and get people the corrective surgery or treatment they need.
Awareness for CRY and the new documentary “Sudden Death: My Sister’s Silent Killer” continued on Twitter. BBC Three posted a clip showing Patrick attending a bereavement support group, and pointed out the incidence of YSCD.
Any person between the age of 14-35 who would like to have their heart tested can register their interest to book a free heart screening. CRY has now started running screening events again, so please book or register your interest by going to www.testmyheart.org.uk.
What is the purpose of cardiac screening?
Sometimes an individual may have a cardiac abnormality without any symptoms. Screening with an electrocardiogram (ECG) is aimed at identifying people with conditions such as heart muscles disorders or electrical faults of the heart.
At CRY, we believe all young people aged 14-35 should have the opportunity to be screened. Cardiac incidents can take place at any time. They are not limited to high-intensity sport; they may occur just jogging across the park or when asleep at night. The screenings programme is not just for people who play sport.
What will happen if I am found to have a condition?
It would depend on the condition. Although many of the conditions are not ‘curable’ they are all treatable and treatments range from lifestyle adaptations to drug therapy or, in some cases, surgery.
If you are concerned or experiencing any of the below symptoms, please contact your GP.
• chest pain, especially during exercise.
• loss of consciousness.
• breathlessness.
• dizziness.
• heart palpitations or fluttering feeling.
• unexplained fainting, especially during exercise.
If you pass out with no warning (i.e. you collapse and do not protect yourself by putting out your hands), please contact CRY prior to your GP appointment.
You can watch the videos below with CRY Ambassador Ben Coleman to learn more about what an ECG test is and what an echocardiogram test is.
Ben Coleman’s ECG: bit.ly/3iHZHtd
The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart.
Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire.
If a more detailed image is needed (about 5–10% of individuals), an echocardiogram can be taken –this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform.
The screening programme is under the aegis of Professor Sanjay Sharma.
Ben Coleman’s echocardiogram: bit.ly/3xIPLUG
Susanna Cooper, Laboratory Technician Khari Edwards, Laboratory Technician
The number of hearts referred has been steadily increasing over the years, as well as the genetic material being taken for future genetic testing which will help families who have suffered a sudden cardiac death or a cardiomyopathy.
We have received 183 total heart cases between January and April this year, and in this time we have seen a great increase in genetic material with 107 spleens received. The human spleen is rich in DNA for extraction. In the future, genetic testing will be done in all cases when a possible inherited condition is identified at autopsy or clinically in the family when there is cardiological screening.
The pie chart shows the causes of death in all cases with the majority being sudden adult death or cardiomyopathies (75% of all cases), all of which are important for family screening.
Our turnaround for issuing a report for the coroner is excellent, well below the 14-day period (see below). These reports are important for families looking for answers.
January-April 2021
• BBC documentary: We were honoured to meet Patrick and be involved in the BBC documentary, “Sudden Death: My Sister’s Silent Killer,” on sudden cardiac death. It was a moving piece that did an excellent job of portraying the importance of the support CRY provides to families in these tragic circumstances.
• Annual CRY Cardiovascular Pathology Course: We arranged the course virtually this year and it was fully booked with 150 participants from all over the world. There was a panel of internationally recognised speakers from Europe, Australia and the USA.
• We are training forensic pathologists in cardiac pathology.
We continue to teach and give evidence at inquests by Zoom.
To learn more about the research completed at the CRY CCP and Professor Mary Sheppard’s work, you can watch her presentation at the 2019 CRY Family Research Day on our YouTube channel here: bit.ly/2Dmg6RU
CRY has been contacted many times by friends and colleagues of bereaved families, asking how they can offer their support. We have created a new resource for friends and colleagues of bereaved families, with thanks to many of our Representatives and Bereavement Supporters for their contributions. This new webpage is a place where bereaved family members can share their experience of anything which their friends or colleagues did to support them, which they found helpful.
To read their contributions, visit www.c-r-y.org.uk/support/supporting-a-bereaved-friend. If any CRY families would like to contribute their own experience of anything friends and colleagues did to support them, they can also submit this via the weblink.
The key is to understand that you cannot cheer your friend up. That you cannot get them to feel better.
However, what you can do is to be with them and just listen; or just be quiet; go for a walk together; make them a coffee; make their dinner.
Be guided by them; ask what they would like to do, and listen carefully to what they say.
Understand that they were not the person they were before and that they will never be that person again. Their tragedy will change them forever and it will have an impact on your relationship.
Remember that you are not failing just because you can’t make them ok again. No one can.
Their life now is about reconstructing their future without the person who has died.
You CAN help them through this tortuous time, and be massively important in a way you never have before, providing you can cope with the person they have now become – as they will never be the same again.
After Shirley Wort’s son Julian died in 2000, aged 28, she determinedly resolved to raise an awesome £50,000 for his CRY memorial fund by his 50th birthday.
Sadly the interjection of the pandemic hindered all fundraising and so Shirley had to dejectedly accept that she would be unable to reach her ambitious target.
However!
3 days after the local newspaper had published her depressing story, a friend of Julian’s had not only magically produced the £2,503 needed, but friends had also signed a birthday card in his memory which included a cheque of a further £190 raised from another collection.
This unexpected card had, very sensitively, been given to an overwhelmed Shirley by a friend of Julian’s when she was visiting his grave, and was matched with a massive bunch of flowers on what would have been his 50th birthday.
The colloquial saying, “that a friend in need is a friend indeed,” could not be more appropriate than when applied to the sudden cardiac death of a young friend.
We are born into our relationships with family, but most of us can remember back to our childhood and the freshness and excitement of making a new friend.
There is no age limit! We can make a much older friend when we are young and a much younger friend when we are old. Understanding each other is what knits the friendship and creates the opportunity for trust. Trust offers a safe harbour for sharing troubles. And sharing troubles help us manage the difficult times and rejoice in the good times.
The sudden cardiac death of a young friend is likely to have a devastating impact on those affected. Parents, relatives, teachers, can be stunned at how piercing coping proves to be.
People can often misunderstand the needs of a young person that has to cope with the brutal impact of such an inexplicable loss. Sudden death is for the oldies when you are young. People age, slow down, start needing medication, attention, and begin to puff when they walk. Sudden death for the oldies is sad but unsurprising.
Sudden death for the under 30’s is a life ripped inexplicably away with no vocabulary that can satisfactorily explain the loss or express the shock.
Supporting a grieving young friend is about their needs. Just being there can take some courage but can have a massive impact. Staying quiet, being prepared just to listen – even if it is just the silence that you are listening to – can be very calming.
Offering to make their dinner and carefully, uncritically understanding their response – whatever it is – matters. If given the opportunity, they will guide you but they will no longer be the person they were before and never will be.
Their tragedy will impact on your relationship but your patience and kindness will never be forgotten.
They now have to try and reconstruct the future without their friend and if you can help them through this tortuous time you will become important to them in a way you have never been before. Remember when it is challenging that you are not failing because you cannot make them ok. No one can because they will never be the same again.
Nothing more clearly corroborates the anguish of loss than Andy Gard’s friend. Andy had been an apparently healthy, sporty popular 17-yearold. They had been school friends. He was now a middleaged business man and aware that he needed to train hard to be fit, but determinedly requested a CRY place in the London Marathon.
He wanted to run in memory of Andy 20 years after he had died. He did, and finished the race with the chest of his shirt wet with tears.
CRY’s “A Friend’s Grief” booklet features 10 short chapters from 29 bereaved young people talking through their experience of coping with the gap their friend has left. They explain how they have tried to adapt their lives without their friend and emphasise how much talking helps address what happened. You can read the booklet online by going to bit.ly/3xn1Bnl
The #CRY4Friends campaign aims to highlight the grief felt by young people when they experience the death of a friend and encourage young people to share their memories and feelings. The webpage cry4friends.org.uk includes links to social media posts from those who shared their stories and photos, as well as links to support resources like the “A Friend’s Grief” booklet and CRY’s Facebook support groups.
To help mark CRY’s 25th anniversary, we were thrilled to introduce a new virtual event: the 25 Million Metre Challenge.
The aim of the event was to challenge people to collectively cover the distance of 25 million metres from February 1 (the start of Heart Month) to May 2.
We partnered with CRY supporter and myheart member Tony Eames, who originally created the Million Metre Challenge to raise funds and awareness for the charity. In 1991, when Tony was 12, he was diagnosed with long QT.
“As CRY continues to mark its 25th anniversary, we will be taking the opportunity of celebrating the achievements and milestones of everyone who has been diagnosed with a heart condition at a young age and who is living life to the full,” CRY Chief Executive Dr Steven Cox said as the start of the 25 Million Metre Challenge approached. “As well as helping us to encourage all young people aged 1435 to get their heart checked.”
Supporters could take part as an individual or create a virtual team of 12 and complete metres by walking, running, cycling, rowing or swimming. 134 people (including some members of CRY’s staff) all around the country took part, covering their distances in various ways to help us towards our lofty target.
The event got off to a fantastic start as participants
racked up over 15 million metres in the first month alone! As this momentum continued, we decided to be even more ambitious and double our overall challenge target to 50 million metres.
A combined total amount of 47,369,782.85m was completed! This is almost double the target we originally set out to accomplish and equates to travelling more than once around the world! It can also be equated to completing 1,122 marathons! A very fitting achievement for our 25th anniversary.
Through this challenge we also raised nearly £4,000 and excellent awareness, as supporters got active in their local communities and shared word of the event on social media.
Thank you so much to everyone who took part in this challenge! It was amazing to see this new event become such a success.
and talk about the charity’s work and the impact of the pandemic.
While fundraising activities were still so limited earlier this year due to ongoing COVID-19 restrictions, one of our highlights of this four-month period came in late March with a special event. We have been partnered with Sunrise Radio since the start of 2020 as part of CRY’s 25th anniversary to help raise awareness of young sudden cardiac death, the importance of screening, and the work we are doing with on-air advertising and interviews. In March, one of their presenters, Anushka Arora, took on the challenge of hosting a 36-hour broadcast to help raise funds and awareness for CRY.
The broadcast included music, interviews with CRY doctors, families and young people whose lives had been saved by screening, and reminders of why it’s so important to support CRY and raise funds for screening.
“This unique media collaboration will spread awareness as much as it will raise funds for the cause,” Anushka said before starting the event. “We are long past the time when broadcasting was only limited to selling commercials and programming airtime. It has become a means to reach out to the masses and utilize it for the better of the mankind. My heart goes out to those who meet their tragic ends from an undiagnosed heart defect.”
Various guests joined through the broadcast to help push CRY’s key messages. CRY Ambassador and singer songwriter Arjun has been a supporter since the death of his wife Natasha, who died suddenly in 2018 from a previously undiagnosed heart condition when she was just 30 years old. Arjun made an appearance on the broadcast to show his support. Natasha’s sister, Dr Vanessa Sandhu, has also become a CRY supporter, and was interviewed about the impact of Natasha’s death. Other guests included doctors such as former CRY Research Fellow Dr Joyee Basu, and athletes like England Women’s cricketer Danielle Wyatt. CRY Chief Executive Dr Steven Cox also joined to see in the end of the broadcast
Sunrise Radio Managing Director Tony Lit MBE (below) said the following about why the network is backing CRY: “Sunrise is now in its 32nd year of broadcasting to the South Asian community and over the years it has become much more than a source for entertainment but is also relied upon for important community messages, news and information. It’s absolutely vital that we do our bit in society and support charitable organisations like CRY. There can be nothing worse than losing a young life needlessly in our country in this day and age.”
This event was a fantastic way to raise awareness and raised £10,000 for CRY through donations from listeners. Dr Steven Cox spoke as the event came to a close:
“I would like to firstly say a huge thank you to Tony Lit. Tony agreed to become a CRY Ambassador after seeing the impact a young sudden death has and for the last 18 months he has done so much to help us raise awareness and funds for CRY as well as putting this idea forward. As well as Tony, I would like to thank everyone at Sunrise, Kay, Paul, Rajit for bringing this together.
“A big thanks to all your guests for supporting this and their kind words about CRY, in particular Arjun for agreeing to come on the show. Also Professor Sanjay Sharma and all the CRY doctors who talked about their work, as well as all the CRY families who shared their stories about the tragedies in their families which so sadly led them to becoming involved with CRY. Thank you to everyone who has donated and supported this campaign.
“But most of all I would like to thank Anushka. You are really quite incredible. I cannot put my hand on heart and say I listened to every minute, but I’ve been listening for more than 24 hours, and in that time my music horizons have expanded exponentially but I cannot believe you have come to the end of the broadcast with the same energy that you started. You are amazing and I know I speak for everyone out there when I say thank you, Anushka.
To listen to interviews from this event, you can go to c-r-y.org.uk/sunriseradio
Entries appear in the following section according to when CRY sends written receipt for funds raised. The following fundraising was receipted from January to April 2021.
Unfortunately, due to the size of the Update, with so many fundraisers to acknowledge and there being some overlap with memorial fund names, there can occasionally be mistakes. We always strive to enforce
• A gift of £200 was received from NEB UK Ltd in support of the Jane Allen memorial fund.
• New England Biolabs (NEB) donated £100.
Jacqueline Anderson took part in the CRY 12 A Week Challenge and raised £904.
Jessica McCloskey took part in the Virtual London Marathon and raised £132.50.
Faisal Azam donated £300.
Andrew Hall sent in £550 raised the the annual golf ‘Baker Day’.
new methods to eradicate such administrative errors, but we apologise if you have ever been affected in some way by this.
If you see a mistake in the Update or you have any questions, please do not hesitate to contact me at tom@c-r-y.org.uk
Angela Montecute sent in £100 from winning a Christmas tree competition at Retail247 Consulting Ltd.
Crocken ARA raised £173.50 through calendar sales.
Gemma Cannell took part in the CRY 12 A Week Challenge and raised £855, and donated a further £1,000.
Phoebe Lawrie took part in the Virtual London Marathon and raised £3,415.
• Julia Maxwell sent in £100.
• Toby’s granparents sent in £357.34.
Vijay Bhola donated £200.
• Bosmere Junior School raised £180 by holding a bake sale.
• Tracey Lloyd-Jones sent in £750 in lieu of an afternoon tea event.
• Susan Blair held a virtual pub quiz and raised £1,000.
• Susan and Hunter Blair donated £210 through collection pots.
Neil Hadley took part in a sponsored Dryathlon and raised £100.
June Boulton sent in £600 from Steve Robbins and member of the Tall Pines Golf Club.
Rachael Dexter donated £150.
• Eliza, Noah, Donna, Simon, and Josh took part in the CRY 12 A Week Challenge and raised £11,314.85.
• Emmett Whaite, Craig Baxter and their team took part in the CRY 12 A Week Challenge and raised £435.
Amy Windle raised £950.
Emily Braybrooke took part in the CRY 12 A Week Challenge and raised £300.
Philip Broad donated £200.
Zoe Ashbridge donated £100.
Rebecca Marler-Roe, Gill Ayling, Stephen Ayling, Daniel Price, Andrew Longfellow, Daniel Kilbee, Chris Rhodes, Patrick Larvin, Peter Toyne, and Stephanie Dearnley each completed 100km throughout July and raised £1,100.09.
• Bill and Hillary Durrant sold homemade marmalade, jams, Christmas cakes and puddings and sent Christmas donations totalling £300.
• Hillary and Bill Durrant sent in £610 raised through the sale of marmalades and accordions.
• Bill and Hilary Durrant raised £210 through preserves sales and a kiddie car sale.
John Simpson raised £100 through his making and selling Christmas reindeer.
The members of Wath Cricket Club raised £181.
Mandy, Julie and Melanie donated £100 collected in memory of their mother.
Alice and Trevor Wheaton donated £160 in memory of their grandson.
Jonny Campbell ran a half marathon and raised £830.
Karen Campbell donated £111.
George Cannon donated £100.
Sudipta Choudhury donated £300.
Connor and Anna took part in an Icebreaker open water swim and raised £152.03.
Gordon Prosser sent in £100.
Katie Bridges raised £466 through her Someone Special page.
Katie Forbes completed various challenges throughout 2020, such as The Yorkshire Three Peaks, The Pennine Way and The Edale Skyline Challenge, and raised £1,127.84.
Ann Armstrong donated £200 in memory of her daughter.
• Richard Ponsford took part in the CRY 12 A Week Challenge and raised £270.
• Mark Pearson donated £100.
Dawn Johnson donated £100.
• Mrs Kumaratunga sent in £100.
• Sarabjit Sandhu donated £100 in memory of his daughter.
Natalie and Mark completed their challenge of running 10k or cycling 10 miles each day throughout January and raised £891.
• Rachael Radcliffe donated £269.
• Carole Wilson donated £100.
• Les Evans donated £400.
• Christine Cowan raised £300 from the Grand National sweepstake.
• Colin Allan donated £100.
• James Cox donated £100.
• Lily and Ellie took part in a sponsored cycle and raised £1,064.70.
Sarah, Simon, Belle, and Joe took part in the CRY 12 A Week Challenge and raised £629.81.
• Sarah Craig took part in the CRY 12 A Week Challenge and raised £479.
• James Evans donated £144.
• Ciara Mageean donated £150.
Matt Page completed the Festive 500 cycle challenge and raised £4,229.88.
The Reverend Brian Cunningham donated £100.
Anita Kainth took part in the CRY 12 A Week Challenge and raised £150.
• Ingrid Dalrymple sent in £250 raised through a talk and social evening at SWRI, Quoyloo, Orkney.
• Papdale Stores raised £465.81.
• Papdale Stores, Kirkwall donated £500.
• Ingrid Dalrymple sent in £300 raised by Kirkwall Bowling Club through their open day.
• Graham Campbell raised £1,000 from the sale of his photo calendars.
Alisha Porter sent in £1,658.49.
• Emma Baker and her team took part in the Why Not Run Event and raised £1,071.12.
• James Houlder at Opera sent in £500.
Rosalyn Day took part in the virtual CRY Heart of Durham Walk and raised £100.
• Kate Parry took part in the CRY 12 A Week Challenge and raised £330.
• Ellesmere College took part in a virtual Snowdon Run and raised £140.
Luke’s godmother, Sonia Slater, sent in £505 representing donations received in lieu of floral tributes in memory of her mother, Louise Sadiwskyj.
• Groundwork UK donated £1,000.
• The JD Foundation donated a further £20,000.
• Running Bear Sports donated £1,200.
• Mark Anderson raised £200 though the sale of plastic bags.
• Elaine Nelson and Debbie Dixon raised a further £11,195.97 towards their CRY for Cumbria screening initiative.
• Co-op Local Community Fund (LCF) donated £672.85.
Sarah Irving took part in the CRY 12 A Week Challenge and raised £400.
Jan Doig completed a virtual cycle of Route 66 and raised £780.
Verica Adams donated £100.
Jo Juson completed a 10k run and raised £3,045.
• Adrian Welsh donated £100.
• Edward Culley donated £100.
• Chris Honor donated £100.
• Steve Burnhill donated £200.
• Andrew Milner donated £100.
• Andrew Sheridan donated £100.
• Huw Ellison sent in £102 from funeral donations.
• Wakefield District Round Table donated £100 in memory of Rory’s father, Chris.
• Anne Embling donated £100.
• Royds School in Rothwell raised £1,715.70.
Katherine Leach took part in the CRY 12 A Week Challenge and raised £352.
• Vicky Unsworth donated £108.40.
• Colleagues at Newquay Job Centre donated £175.
John Anderson donated £100.
Logicool Air Conditioning & Heat Pumps Ltd donated £500.
Catherine Ashenhurst donated £160.
Tim Prosser took part in a sponsored head shave and raised £3,464.67.
Michelle Faulkner raised £724.51 through various fundraising events.
Tara Challenor held an online concert in memory of Linda Eke and raised £288.
• Marie Fitzgerald sent in £500.
• Blackfen School for Girls raised £678.94.
• Magda Tageldin raised £564.30 through taking part in the CRY Great Cake Bake.
Sean and Jess took part in the Harrogate 10k and raised £800.
• Lynn Smail donated £150.
• Margaret Strang donated £150.
Daniel, Geri, and Bridget raised £240.
Mia Gillespie took part in the CRY 12 A Week Challenge and raised £165.
Roslyn Gammon donated £100.
Margaret Gault donated £200 in lieu of sending Christmas cards.
Jackie German sent in £227.
Rosemary Goodman donated £1,000 in honour of Alexander’s birthday.
Linda Goodwin raised £179.60 through her 20p piece collection.
Mark Tipping raised £5,357.22 from his annual Christmas light display.
• The Lady Forester Trust donated £2,500.
• Tom and Judy Green raised £150 through taking part in the CRY Great Cake Bake.
Helen MacKenzie donated £250.
Teddy Waite and Frank Wylde took part in the CRY 12 A Week Challenge and raised £1,038.
Sue Carpenter raised £710 through the sale of face masks.
Sue Lord donated £200.
Richard Woodman-Bailey donated £100.
Carole Cooper sent in donations of £210 in memory of her partner, Stephen Horsfield.
Mary Collett donated £100.
• Sharni Copham ran the Brighton Marathon and raised £210.
• Julie Essex ran 1 mile every hour for her 24 hour virtual run and raised £5,000.
• Chris Morgan donated £100.
• Brad Sinclair took part in the Back to the Trenches Assault Course and raised £1,188.82.
• Sam Roberts raised £385 through taking part in the TH96 Run.
• Chris, Wayne, Greg, Louis, Tom, and Neil took part in TH96 Run and raised £355.
• Chris and Max raised £7,649.55 through their Atlantic Challenge.
Tracey, Mark, and Tyler raised £1,215 in lieu of sending Christmas cards.
• Paula Hesmondhalgh forwarded £450 raised through the sale of cakes, donations and Annallee Brooks Body Shop.
• John Cookson donated £500.
• Mark Jones and Peri Dunford held a mini tractor run and raised £100.
• Nathan’s Wastesavers raised a further £106.05.
• Pat Collins and members of the Catterall Wednesday Social Club raised £200.
• Paula Hesmondhalgh forwarded £400 raised through making masks at Nicksons of Garstang.
• Paula Hesmondhalgh forwarded a donation of £142.25 in memory of her friend Tom Rainford.
• Pat and Mike Hall donated £500.
• Paula Boscott School of Dance raised £2,671. The Flyde Country Life Preservation Society (£300) and the Flower Bowl Entertainment Centre both contributed towards this total.
• Nathan’s Wastesavers donated £195.
• Garstang Musical Productions donated £250.
Louie Sweeney, Jordan Hughes, Nathan Doyle, and Andrew Riley took part in the CRY 12 A Week Challenge and raised £357.
• Jackie Gambrell donated £125.
• James Benson-King raised £3,140 from his challenge to Swim 60km, Run 600km, Row 600km and Cycle 6,000km throughout 2020:
“My challenge title is unfortunately a bit of a mouthful. In fact, it was a challenge in itself at the start of the year getting people to even understand what I was attempting to do. But I had always wanted to raise money for CRY in memory of my friend, Alex Hubbard, and I would be damned if the challenge was going to be easy! I therefore decided in late 2019 that I would attempt to swim 60km, run 600km, row 600km and cycle 6000km over the year of 2020. I had worked out that the weekly averages seemed achievable and so I set up the GoFundMe, sent out the invites and I started!
“Cut to 3 months later and I hadn’t clocked up many kilometres in any of the categories. Despite setting out what I thought were realistic targets, work and life appeared to be getting in my way. So whilst everyone prepared to go into lockdown due to coronavirus, I was scheming drastic targets to get back on track. I managed to find a rowing machine in late March and decided that every day in April I would run 3km and row 5km. At the weekends I planned to cycle 150km+ and I hadn’t yet figured out how to catch up on swimming. With the plan in place I started to execute and saw the kilometres covered start to grow and grow. Through April, May and June I continued covering large distances in these three spaces and turned my attention briefly to swimming. With the pools closed I took to the sea and started swimming there as often as I could. Which wasn’t much.
“By September I had completed the rowing portion of the challenge, my running was on track, swimming was woeful and I was preparing for the biggest challenge of my life. The Land’s End to John O’Groat’s cycle. With a few bike packing adventures now under my belt, I set off and completed the 1,600km+ journey with my partner in crime and completed in 11 days. Seeing places all throughout the UK by bike was fantastic and led to some amazing adventures and experiences. There were some truly mentally and physically exhausting parts, but it was all worthwhile as this was when I started to see over £1,750 of donations. This really spurred us on and kept us going. Although there was never any doubt in my head that we
wouldn’t finish!
“After the cycling challenge was complete I returned home and eyed up the remaining distances that needed to be covered. Going into November I had 40km left to swim, 100km left to run and 1200km left to cycle. With the pools closing again for a second lockdown, I did the only thing I could do: donned my wetsuit and started hitting some aggressive swimming kilometres in the winter sea. I maintained my weekly running targets and started cycling indoors as often as I could, with long outdoor cycles getting more difficult as winter progressed. I finally hit my swimming target on December 21st and ended the challenge on the 31st with an 8k run and 80k cycle
“With the distances covered I had a final influx of donations reaching a total of £2,640. The challenge itself was incredibly tough at times with the most surprising part being the extent of the time commitment. In total around 750 hours dedicated to this cause with 450 hours of those actually swimming, running, rowing or cycling. All in all though it was worth it to see this money get donated to a great cause and to finally make a contribution to this charity in memory of my friend.”
Frankie organised an 8-mile walk in memory of her uncle Dan and raised £2,433.94:
“On the 19th of December 2020, 7-year-old
Frankie Hughes completed an 8-mile walk to raise money for her uncle Dan’s memorial fund with CRY. Frankie was 2 years old when Dan died in his sleep on March the 19th 2015, but she still talks about him and she attends most of our fundraising days with her younger sister Millie who was born the day after Dan died.
“Frankie has recently joined the local Brownie club having spent 12 months at Rainbows. She had her badges book when she joined and the first one she chose to do was the charity badge. ‘I want to do something for uncle Dan,’ she said. So, we talked about what we could do and given the current restrictions due to the pandemic we thought a walk would be the best thing to do. We wanted it to be a challenge for her but make it something that we could associate with Dan, so we settled on a walk from Stoke City’s Football ground to home. Dan had been a season ticket holder at Stoke for many years and it was 8 miles from the house where he died, so we thought it was a fitting tribute to him and something that Frankie could manage. She spent 6 weeks training at weekends gradually building up the miles each time, she was out walking in the wind and rain but she had all the correct clothing and proper walking boots, so she was well prepared.
“On the day of the walk, she left the stadium at approximately 9:45 with her granddad Dave who walked the first half of the route with her. This took her over the river Trent, through Stoke town center and on into Newcastle under Lyme where she had a break before setting off on the second half accompanied by her mum and nana. Younger sister and number one fan Millie surprised them on the route by standing on the pavement banging a wooden spoon on a saucepan to spur her on to the finish. Motorists peeped their horns at her as she walked the last mile down the hill into the village and there was a small socially distanced group of people waiting to give her a cheer as she made it to the Plough in Bignall End.
“The support that she received was both amazing and humbling. She raised £2,388.94 via cash donations, a JustGiving page and a raffle. When gift aid is added in the total is £2,802.50. As well as being a success in raising money, Frankie was also able raise awareness of CRY across Stoke on Trent, North Staffordshire and South
Ellie Storr took part in the 5k Sheffield Student Colour Run and raised £226.
Margaret Bailey donated £240.
Cheshire by speaking live on local Radio station, Hitmix 107.5, and recording an interview which was played on BBC Radio Stoke. Her walk also appeared in the local newspaper and was mentioned on local community websites.
“We are very proud of what Frankie achieved and would like to thank everyone who supported her and we are very glad to say that she got her Brownies Charity badge as well. Well done, Frankie, you’re a little star.” Dave Hughes.
Joannah Thelwell took part in the CRY 12 A Week Challenge and raised £310.
Valerie Jennings donated £100.
Leigh’s parents and brother donated £200.
Malcolm Salmons donated £100.
Carl and Eunice Johnson donated £100.
Audrey Jones sent in £452 raised by family fundraising, and a further £790.
• Mike Wagstaff donated £500.
• Toyota GB plc donated £1,000 in support of a skydive that Rob Giles and his friends completed.
• Dan Cotterell donated £100.
• Andrea Joyce organised an afternoon tea and raised £2,671.
• Jordan and Josh McQueen sent in donations of £110 in memory of their mother (Kieran’s godmother), June Lloyd.
• Keri Meredith donated £125 in memory of her fatherin-law, Ken Jones.
• Andrea Joyce sent in £870 raised through the Prestigne cake sale.
• Angela Jones sent in £125 in memory of Margaret Pugh.
• Amy Bemand raised £130 through Christmas wreaths and reindeer food sales.
• Co-Op Local Community Fund (LCF) donated £822.52.
• The Manchester United Foundation donated £500 on behalf of the Hereford Manchester United Supporters Club, who nominated CRY to receive the fund through the United for the Children campaign.
• Clair and Carolyn raised £835 through take away meals.
• Peter Garrigan donated £100.
• Christopher and Annette Keeler took part in the CRY Virtual Durham Walk and raised £100.
Anthony Parsons donated £100.
Elizabethan Lodge 7286 donated £300.
• Barbara Radecki sent in donations totalling £193.46 in memory of her nephew.
• Greg Key sent in £1,076.95 representing donations received in lieu of floral tributes in memory of his son.
• Danielle Riley donated £100.
• Chris Boyes donated £100.
• The staff at Our Lady’s Roman Catholic High School donated £100.
• Andrew Riley donated £100.
David Fallaize completed a 30-day fitness challenge and raised £120.
Evan Norfolk at Southend Dog Training donated £250.
Gallagher Insurance donated £203.54.
Callum Macaskill raised £120 ahead of the 2020 Nuclear Race before the event’s cancellation.
Andrew Cartilidge donated £1,000.
Jonathan Krish donated £250.
Parvin Kukar donated £250.
• Birte Harlev-Lam took part in the CRY 12 A Week Challenge and raised £652.
• Allen Talbot took part in the CRY 12 A Week Challenge and raised £150.
• Mun Seng Lam donated £140.
• £185 was given for planters made from pallets by Malcolm Talbot. With thanks to The Green Store, Croxley Green and customers.
• Malcolm and Jane Talbot raised £110 through the sale of pallets made by Malcolm sold at The Green Store in Croxley Green:
“The money has been raised by Wendy Iveson through
her shop The Green Store, Croxley with the help of Jane and Malcolm Talbot. Malcolm has been making planters from wooden pallets to sell along with donated bedding plants. All monies from the sales have gone directly to CRY. Wendy has told our story in memory of Jannik, to her customers, raising awareness and highlighting the work of CRY.”
Ryan Lancastle took part in the CRY 12 A Week Challenge and raised £560.
Jennifer Perry donated £100.
Luke Capay donated £100.
David Leigh sent in donations totalling £200 collected at the funeral of Evelyn Sarah Leigh, Jonathan’s grandmother.
Kim Lewis sent in £10,000.
Jason Hargaden donated £100.
• Graham Loncaster sent in £217.95 raised by South Hunsley School’s football match.
• A & A Motors (Yorkshire Ltd) donated £220.
• Peter Loncaster forwarded a donation of £100.
• Swanland Parish Council donated £200.
• Graham Loncaster donated £100.
• Graham and Jenny Loncaster sent in £120 raised from CRY Great Cake Bake donations.
• Peter Loncaster donated £250.
• Marcus Pape took part in the CRY 12 A Week Challenge and raised £100.
• Graham and Jenny Loncaster took part in the CRY 12 A Week Challenge and raised £1,877.
Liam Flanagan and Karen McCluskey took part in the CRY 12 A Week Challenge and raised £2,130.
Mr Lowe sent in £196.38 representing floral tributes in memory of his mother.
• DLA Piper UK LLP donated £1,000.
• Julia Lumley took part in the CRY Virtual Durham Walk and raised £300.
Karis Lungrin took part in the CRY 12 A Week Challenge and raised £830.
The Wells Fargo Team took part in a weekly run and raised £300.
Paul Romaniszyn donated £100.
Neha and Neeraj Arora donated £500.
• Ben Sharp at Northwood 41 Club sent in £650 raised through a Father Christmas sledge.
• Northwood 41-Club raised £348.32 from the Northwood Santa Sleigh Collection.
Steph Corby sent in £1,020 representing floral tributes in memory of her mother, Roz.
Maggie Whitlock raised £108.80 through a memorial page in memory of Jacqueline Deborah Spruce.
• Angela Payton donated £100 in lieu of Christmas presents, in memory of her cousin.
• Roger and Val donated £100.
David McAleese donated £400 in memory of his son.
John Mair donated £100.
Margaret and Stephen McGuinness took part in the CRY 12 A Week Challenge and raised £100.
Bryan McIlroy sent in £855 representing floral tributes in memory of his mother.
Lesley McLean took part in the CRY Virtual Durham Walk and raised £100.
Maria Mead and Darran Underhill took part in the CRY 12 A Week Challenge and raised £400.
Deborah Farghaly donated £100.
Martin Brower UK Ltd donated £250.
Paul Archbold took part in a sponsored head shave and raised £832.
Chris Fry completed the Three Peaks Challenge and raised £1,010.
• Alice Smith and Joshua Hirst raised £115.
• The students of Hornsea School raised £201.10.
Neville Goodwin donated £350.
Alison Mottram sent in £200 collected at a family funeral.
Alastair Cruickshank donated £2,000.
Kulbir Nagra completed a skydive and raised £553.
• Cath Nee donated £200.
• Dawn Carter donated £100.
Perry Hanafin raised £380 ahead of the Lakelands Ultra 55k Marathon before the event’s cancellation.
Kathryn Neve donated £930.
• Janet Tomlinson donated £100.
• John Gold donated £130.
Suart Nicol donated a total of £350.
Derek Northedge donated £100.
Peter Smith forwarded a donation of £405 through the sale of steelmen pins.
Karl Howell sent in £500 raised by Steve Brown from his horse racing syndicate win.
Gail Seymour sent in £100 for a sponsored walking challenge.
Dumbarton Harp 500 Club donated £120.
• Stephanie Gledhill forwarded £100 from Darren Buckingham and Phillipa Morton.
• Stephanie, Robin, Helen, Adam, and Drew took part in the CRY 12 A Week Challenge and raised £978.
Karen Padmore donated £110.
Janet Palmer donated £250.
• Patricia, Jane and Robert made Christmas donations totalling £135.
• Ron and Patricia Toft took part in the CRY Virtual Durham Walk and raised £150.
Kathy and Alan Sorrell donated £100 in memory of Peter Patterson.
Mr Lang donated £100.
Chris Kirby completed his challenge of running 1,500 miles throughout 2020 and raised £2,215.
The Sacred Heart Language College donated £103.
• Gaye Pickford sent in £1,550 raised through donations and an online raffle.
• Gaye Pickford donated £150.
• Mike Pickford donated £400.
• Chloe Pickford sent in £110 raised through team football cards and a donation from Alun Pervin.
• Chloe Pickford sent in £100 raised through football cards and a further £50 donation from Dean Woodward.
D Blease sent in £140 representing a collection of funeral donations in memory of her mother.
EnQuest plc donated £1,000.
• Stephen Pomfret donated £550.
• Stephen and Nadia Pomfret donated £250.
• Stephen and Nadia Pomfret and Haileybury Imperial Service College held a Run For Ally 2020 event and raised a total of £3,183.96.
• Haileybury College raised £2016.96 during a 2020 sponsored run.
Rita Ponting raised £284 from the sale of jam and chutney.
John Roach donated £1,500 in memory of Michael Roach.
Joan Pybus donated £200.
Simon Stevens took part in the Virtual London Marathon and raised £2,117.74.
• Florence Dickens took part in the CRY 12 A Week Challenge and raised £275.
• Susan Ball donated £100 in support of
Heather’s 624 mile running event.
• Hannah Wright raised £985.65 ahead of Race To The Stones before the event’s cancellation.
• Ms Smith and Mr Pressley sent in £100.
• Heather Reid and Mark Downing donated £430.
Sylvia Pezzack forwarded a donation of £250 from Mr and Mrs Brian Stevens, and a further £25 from a friend.
Charlene Reynolds took part in the CRY 12 A Week Challenge and raised £145.
Gillian Gee raised £5,500 through various events during her year as Lady Captain at Trentham Golf Club.
ALTIGA Limited donated £200.
• Sam Rose and family raised £506.16 from their Christmas light display.
• Rudy and Bodhi donated £20 to commemorate Jamie-Leigh’s 11th birthday.
• Mia raised £858.64 from the sale of her homemade wristbands:
“Our daughter Mia tragically lost one of her best friends, Jamie-Leigh, in December 2019, to myocarditis, a day we will never forget when the news broke that her friend had died in her sleep.
“For a nine-year-old it was really tough along with her other school friends. They struggled to come to terms with it. It’s not something nine-year-olds often go through or should have to go through. From the funeral to a school memorial service these children were in bits about losing one of their pals and it was such a tough time for all who knew her.
“Mia struggled to come to terms with things and wouldn’t talk about Jamie-Leigh to begin with. As time moved on and in trying to deal with the process of her friend dying, we tried to encourage her to remember the happy times and the funny times and so on.
“With the year anniversary coming round fast we wanted to do something positive for people to remember
Jamie-Leigh and to raise awareness of cardiac arrests in the young. We came up with the idea of selling wristbands in her memory with her name, in rainbow colours. We look for her in rainbows…
“Once the word got out, Mia was inundated with orders for friends, pupils in the school, their parents and families, school staff, and the local community.
“She collected all the money and dealt with bagging up the bands and distributing them. It was a big task. She took it all in her stride and enjoyed doing it.
“Everyone wears their bands with pride and remembers Jamie-Leigh and in selling 480 bands in total Mia has made an astounding £858.64 for CRY.
“We couldn’t be more proud of her and we know JamieLeigh’s mum Ellen and brother Alfie are so proud too.” Karen and Paul, Mia’s parents.
• Eileen Parkin sent in £363 raised from a raffle.
• Elder Church of Scotland Rogart Sutherland donated £1,500.
• Tony and Alison Atkins donated £100.
• Gordon Mackay sent in £238 raised from the raffle of a Brora beach photo.
Jill Rutter, Evelyn Byrom, and Frank Turner raised £1,500.48 in lieu of floral tributes in memory of Dave Turner.
Philip Sanders donated £100.
Deborah Lee raised £8,199.14 as her time as Ladies captain at Woodcote Park Golf Club.
Tonia Say donated £100 in lieu of birthday gifts.
Colin Forder sent in £405 raised through an annual football match.
• Marje Scott forwarded £582.25 from Lady Lumley’s School raised through their Christmas jumper day, and a further £25 from Carol Gamble, Mike’s auntie.
• Craig Ibbotson raised a further £180 from a charity basketball event.
Shalin Patel donated £100.
Bishopton Rugby Club held a sponsored club active day and raised £1,440.
Ritu Sethi at The Sethi Partnership Solicitors donated £101.
Elizabeth Sheriff donated £100.
• Peter Shonfield donated £300, including £200 from remembering Evan at Christmas, and a further £100.
• Tommy cycled over 50km and raised £425.50.
• Ridgeway WI donated £500.
• Alice Fontana sent in £221 raised by her 10-year-old daughter through selling handcrafted earrings, supported by her school Broomwood Hall.
• North East Co-op Funeral Services Ltd sent £145.35 representing donations received in lieu of floral tributes.
• Chemlink Specialities Ltd donated £200 in memory of their employee.
Jennifer Waters sent in £130 in memory of her mother, Jenny, and brother, Alex Bowen-Smith.
Sue Fisher took part in the CRY 12 A Week Challenge and raised £516.
Team Nick’s Legacy took part in the Shoreditch 10k Adidas City Run and the Lee Valley VeloPark 10k and raised £4,677.06.
• Katy Studholme donated £100.
• Friends at Barton Moss donated £150.
• Rob Ashton donated £167.
• Sandra Horridge donated £100.
Harry’s grandparents sent in £150 in lieu of sending Christmas cards.
Edward Stockton took part in a sponsored head shave and raised £1,538.80.
Michael Styles donated £200 in memory of his brother.
Maureen Bull sent in donations totalling £400 raised from boot sales, a collection box, table top sales and donations.
Charlotte Worsley donated £120.
Beryl Ewing raised £750 through making Christmas cards and face masks:
“As well as making my Christmas cards this year, I have also been making face masks. At first I was giving them to family and friends, but from November I decided to make Christmas ones and charge for them (all proceeds for CRY).
“Along with donations from friends and family this year, I have made a huge £750. It just goes to show that good things can come out of bad and it felt satisfying that I was helping to keep people safe. It gave me great pride to see my colleagues in the Chester Mail Centre wearing my face masks. One of my colleagues is a member of the Widows & Widowers group of Cheshire and they very generously gave me a bulk order of masks.
“It is now 21 years since our lovely Suzanne passed away. She would have been 40 years old last October.” Beryl Ewing.
Alec Lea raised £440 during his year as Charity Captain at Farnham Park Golf Club in memory of his step daughter.
Janet Sharples took part in the Virtual London Marathon and raised £2,894.21.
Rossiters Funeral directors sent in £323.56 on behalf of Julie Phillips in memory of her mother.
Sheryl Clark took part in the Virtual London Marathon and raised £425.
Ben Wielgus at Informa PLC raised £225 through the Walk the World event.
Graham Thompson donated £380.
Liz Sparks made face masks and raised £515.
Harry Haynes raised £150 through a car wash raffle in memory of his grandfather.
Suna Tilley sent in £1,933.08.
G E Simnet Funeral Directors forwarded £240.08 representing donations received in lieu of floral tributes.
Jack Budd raised £510.
Peter Doherty sent in £300 raised through a memorial golf tournament.
• John Bell and the Partners of Glenny LLP donated £500.
• Danny and Thomas Hyde completed the London Bridges 30 Mile Challenge and raised £1,061.62.
Paul Usher took part in BBC’s Pointless and nominated CRY to receive £250 in memory of his son.
• Jackie Stoutt donated £100.
• PwC Foundation donated £1,000.
• Andrew Vaughan sent in £120 raised by the patients of Snaefell Surgery.
• Staff at Conister Bank Ltd raised £3,137.10.
• Anna and Emily took part in Tough Mudder and raised £640.
• Altrincham Grammar School for Girls raised £1,090.09.
Ken Waight sent in £200 representing donations received in lieu of floral tributes for Marion Shaw, Richard’s grandma.
Stephen McCormick took part in the Great Manchester Run and raised £595.50.
• Lesley and Steven donated £100.
• William Fisher sent in £275 representing donations received in lieu of floral tributes in memory of his father William Arthur Fisher, Matthew’s grandfather.
• Eddie Whittle took part in various fundraising activities, such as The Spine Challenger and the Anglesey Half Marathon, and raised £410.
Elaine Ward donated £100 in lieu of sending Christmas cards.
• The Alex Wardle foundation donated £500.
• Gemma and Denise Wardle took part in the CRY 12 A Week Challenge and raised £395.
• Kim Penney raised £160.
• Linda Caple took part in the Derby 10k and raised £535.
Richard and Clare Watts held a remembrance, awareness and fundraising evening in memory of Melissa and raised £2,420.
• Claire Thompson took part in the CRY 12 A Week Challenge and raised £220.
• Melanie Webster took part in the CRY 12 A Week Challenge and raised £368.
Lisa Steel donated £275, including £105 raised from an Easter egg hamper raffle.
Sheila Wiggins sent in £182 raised by the Heartfelt Group from a penny jar and donations.
Karen Williams raised £1,488.08.
Sue Williams took part in the CRY 12 A Week Challenge and raised £562.
Ryan Franklin took part in the Virtual London Marathon and raised £1,895.
Norman Wood donated £150 in memory of his son.
• Kev and Laura Rumming (of Frome Auto Electrical) donated £2,503.
• Shirley Wort donated £220 in memory of Julian on his 50th birthday:
“We have been fundraising since 2001, since losing Julian in March 2000. We have funded 4 screening sessions in his memory, and donated ECG machines and defibrillators to our local hospital and medical practice. We had our 5th screening booked for March 21st 2020 to coincide with our 20 years of fundraising, but unfortunately as with everything else, this was cancelled due to the COVID-19 pandemic. Another date was booked for March 20th 2021, which would have coincided with Julian’s 50th Birthday and 21 years of our sad loss, but this had to be cancelled and there were no fundraising activities.
“We were really disappointed as we wanted to reach our £50,000 milestone amount for Julian’s birthday. I contacted our local newspaper explaining our situation, and they kindly did a front page write-up for us explaining how we had so far raised £47,497 for the memorial fund. This was published on the Wednesday, and on the following Saturday afternoon, our doorbell rang and one of Julian’s best friends Kev Rumming and his wife Laura handed me an envelope with a cheque inside for £2,503 to enable us to reach our milestone amount. I was so overwhelmed and emotional and of course couldn’t even give them a hug. Kev and his family have always supported us. And the following week, I had another phone call from another friend of Julian, Chris Rumming (no relation to Kev). He asked me to meet him at the cemetery and he gave me a 50th birthday card signed by many of Julian’s friends with £190 enclosed from a collection, plus a huge bouquet of flowers for me. Such wonderful friends.” Shirley Wort.
• Sanjay Anand donated £100.
• Ruchi Arora donated £100.
• Bablake Senior School raised £120.
• Kim Baptista took part in the Virtual Last Runner Standing and raised £218.96.
• Richard Barton sent in £100 following a junior member of his cycle club taking part in a 24 hour bike ride.
• Barwell Motorsport Ltd raised £3,000 from auctioning motor sports trophies.
• Beggars Group Ltd donated £2,500 in memory of Gabriele.
• Benevolence Lodge No.489 donated £1,500.
• The Berkeley Partnership donated £200.
• Binfield FC ran from Binfield FC to Bondi Beach and back again and raised £2,260.
• Dr David Brown donated £100, in respect of thanks to Dr Mark Gallagher.
• Flavio Bucciarelli donated £200.
• CarTakeBack donated £132.
• Castlerock Golf Club donated £500.
• Raj Chandok donated £100.
• Charity CarTakeBack donated £143.
• Anushka Chopra donated £100.
• Cincinnati Global Underwriting donated £750.
• The Cobra Foundation donated £180.
• Jennifer Cohen donated £100.
• Pauline Coleman donated £100.
• Contracting Management Development Ltd donated
£250 in lieu of sending Christmas cards.
• The Catherine Cookson Charitable Trust donated £500.
• Louise Cooper and Vicky Green completed a sponsored trek of The Via Francigena and raised a total of £755.
• Constance Craig-McGrath donated £600.
• Sophie Cunningham raised £367.98 through the Zymwire employee giving programme.
• Paul Deep donated £101.
• David Dickenson donated his winnings of £100 from Acuity Business Solutions’ 6 Nations Superbru competition.
• Kevin Durley sent in a Christmas donation of £162.
• Liam Dwek donated £250 in memory of a friend.
• Lee Dymond of Purple Buttercup sent in £150 raised through Christmas sales.
• East Riding of Yorkshire Council raised £160 through a bake sale.
• Andrew Evans and team rowed to the Crossfit Boatshed in Cardiff and back and raised £244.42.
• The Florian Charitable Trust donated £5,000.
• Graham Foster donated £100.
• G C Gibson Charitable Trust £3,000.
• The Gilander Foundation donated £250.
• John Glasper donated £100 in memory of Jonathan Morgan.
• The GM Morrison Charitable Trust donated £1,400.
• Zac Goldsmith donated £250.
• Ram Goyal donated £500.
• Vicky Green sent in a sponsorship donation of £100 in support of her ‘Walk the way of St James’ event.
• David Griggs sent in £250 in memory of his granddaughter.
• Haberdashers Monmouth School raised £516.
• Bob Hewson from Isherwood Bathroom Installations donated £100.
• H A Holliday Charitable Trust donated £500.
• Margaret Halliday donated £500.
• Annan Harley raised £284.03 through the Zymwire employee giving programme.
• Jean Hibbs donated £1,000.
• Lorraine Howard at Healthcare Solutions Ltd donated £100.
• The Hudson Charitable Trust donated £500.
• Sophie Lagou raised £189.95 through the sale of Christmas cards.
• Jodie Ingram sent in £225 raised from an office collection at Bailey Court JCP.
• Brendan James took part in the CRY 12 A Week Challenge and raised £120.
• James, Ed, Ewan and Jon (Atlantic Ambition Kings Worcester) raised £5,211.16 by sailing the Atlantic.
• Holly Jenkins ran 100km in a week and raised £205.
• The John Cowan Foundation donated £300.
• Gerard Jones took part in Veganuary as part of Team Warwick Veganuary and raised £135.
• David Jubb at NMG Consulting sent in £100.
• Tom Keating raised £1,801 ahead of the Marathon Des Sables and Ironman Nice before the events’ cancellations.
• Reeds School pupil Amy Kenningham (right) made and sold marmalade and raised £675.
• Konvergent donated £600.
• Kashmiraben Kumar donated £101.
• Alastair Lawson took part in the Virtual London Marathon and raised £1,515.42.
• Angela Lee took part in the 12 A Week Challenge and raised £138.
• Liesl and Stuart took part in the 12 A Week Challenge and raised £900.
• The Lodge of Daily Advancement L9979, Upminster donated £100.
• The London Metal Exchange donated £125 in lieu of sending Christmas cards.
• Lucy, Louis, Jeremy, and Ian completed The Three Peaks Challenge and raised £5,315:
“We did the fundraising as Louis had a cardiac arrest in August 2019 and as a result has been fitted with an internal defibrillator. Ironically, whilst he was in hospital he was booked in to go to a CRY screening. Following this we decided we wanted to do some fundraising for CRY to raise awareness amongst family and friends and to encourage more young people to go for screenings.
“We did the three peaks over three days starting with Ben Nevis, secondly Scafell Pike and lastly Snowden. It was definitely one of the most physically challenging things myself and Louis have ever done. Jeremy and Ian never really complained and put us young ones to shame. The motivating factor was the money that had already been donated. We are really grateful to everyone who donated and for all of the support we were given.”
• Erin Maguinness took part in the CRY 12 A Week Challenge and raised £354.
• Nicola and Paul Maharg donated £100 for the occasion of the engagement of Angus and Katy.
• Graeme Marchbank at Diageo plc sent in £800.
• Shama Mateen donated £500.
• Melissa, Paul, Joe, James, Anna, and Liv took part in the CRY 12 A Week Challenge and raised £4,000.
• Dan Mines donated £100.
• Laura Moore donated £100.
• Paul Moore donated £250.
• Dan Morgan sent in £165 from a Christmas collection.
• Morrison Supermarkets Plc sent in a matched fund donation of £682 in relation to Nicola Lee’s walk.
• Deepak Nangla donated £100.
• NCC Group donated £100.
• Diana Noble raised £100 through a quiz and Easter egg raffle.
• A Patel donated £500.
• The Patrick Rowland Foundation donated £1,000.
• Pravin Pattni donated £100.
• Paul Bourton Funeral Directors and Kate Evans forwarded donations of £769.15 in lieu of floral tributes in memory of Anthony Evans.
• Sam Pickering took part in the Virtual Nottingham Christmas Marathon and raised £335.
• Pomroy Associates donated £100 in lieu of sending Christmas cards.
• The Premier League sent a £500 Christmas donation.
• The Rachel & David Charitable Trust donated £200.
• Grainne Robinson sent in £100 on behalf of her daughter-in-law, Sheena Robinson.
• Peter and Susan Robinson raised £100 through taking part in the CRY Great Cake Bake.
• The Rotary Club of Titsey & District donated £1,000.
• Rachel Rourke donated £300.
• Christabel Rush donated £100.
• Michael Sands donated £144.
• Alan Schofield raised £930 through the National Portrait Awards.
• Sanjay Sharma donated £200.
• Mike Smith took part in the Serpentine Swim and raised £130.
• Smith and Williamson Services Ltd raised £520.17.
• Sonal, Jen, Katie, Charlotte, Cristina, Jane, James, Neil, Eesha, Lucy, and Graham raised £721.25 by each walking 10,000 steps a day to reach their combined target of 3,000,000 steps in one month.
• Terry Sowle took part in the London Classics Challenge and raised £836.17.
• Ann Styles sent £500 in memory of her son’s friend.
• Jacky B Summerfield took part in the CRY 12 A Week Challenge and raised £359.59.
• David Swindlehurst ran 30 miles as part of his ‘Going to the Pub’ challenge and raised £947.66.
• Ruth Thomas completed 100 miles in 7 days and raised £267.50.
• Ben Thompson completed 100 holes of golf in one day and raised £2,435.98.
• Una Tod donated £100.
• Luke Turner donated £100.
• Unum donated £3,500 in recognition of Peter O’Donnell’s retirement from the Company.
• Anju Verghese donated £101.
• Deborah Vine raised £500 by completing various swimming challenges to mark her 60th birthday.
• Kami Virdee donated £100.
• Vive Foods donated £367 from snack bar sales.
• Employees at Weetabix Ltd raised £250.
• Penny Whittaker sent in £1,021 raised by the residents of Marston Moor and Marston Close.
• Will and Tom walked 40 miles in full cricket gear and raised £1,265.
• Roger Wouhra donated £100.
• Graham Wright took part in the Green Man Ultra Marathon and raised £275.
If you would like to write a tribute in memory of a CRY supporter, please contact Tom (tom@c-r-y.org.uk) for more information.
been raised at events I was lucky enough to accompany my Grandad to. This includes the Brentwood Christmas Carol Concert a few years ago, in which we stood at the doors with our charity buckets, encouraging those that attended to donate. Of course, there were many similar occasions to this, including the Bridges walk that my family did together shortly after my Dad’s death.
On 26th September 2020, my Grandad, Peter Patterson, passed away, leaving a legacy that will forever make me proud to have not only known him but to call him my Grandad. His work with CRY over the years continues to inspire me to be the best person I can possibly be, in the hope I can be just as selfless, generous, and kind-hearted as he was.
On 2nd September 2005, a week before my first birthday, tragedy struck our family, when my Dad, James Patterson, died of an undiagnosed heart condition. At the time of his death, our family received a large amount of support and advice from Cardiac Risk in the Young and this was something my Grandad was hugely thankful for. To show his gratitude but also to ensure fewer families would be forced to deal with the same devastatingly sad situation, he threw himself into raising money for my Dad’s memorial fund alongside CRY.
His work with CRY quickly became important to him and he began to take an active role in not just raising money but also aiding 1,297 young people in having their hearts tested over the 15 screening days he arranged at Campion School. By the time of his death, my Grandad had raised an incredible £91,334 in memory of my Dad, to provide help for other families like ours and also to keep the memory of my Dad alive. Some of this money has
Now nearly 8 months after Grandad’s death, his family and friends have continued to support CRY on his behalf and members of Dad’s rugby club, Campion Old Boys, have very kindly volunteered to continue to arrange screening days at Campion School.
Grandad was an inspiration to me and to many. His good heart shone through in everything he did and his contribution to CRY was perhaps what made him so special. The unimaginable grief he must have felt at the death of his son did not stop him from being the generous and loving man that he was but rather encouraged him to take action.
He was very proud to play a part in this charity and he would often be found promoting the charity by wearing his CRY cap. In fact, he would not leave the house without it and so we often found ourselves searching for it before we went out. I was lucky enough to inherit this cap and it is the most precious thing I own for not only does it remind me of Grandad but it also reminds me of the great work that he did for the charity and the reasons why.
Though I may never have truly met my Dad, I felt a strong connection to him because of and through my Grandad. He kept his memory alive through raising money and raising awareness for CRY. He was always happy to speak to people about the charity and talk about the important work that he did.
My Aunt and I could not be prouder of my Grandad and this is why we hope to continue to raise money for the charity in his stead. I would like to thank him for being someone I could look up to and admire. He was the greatest man I have ever known and I know that he is missed everyday not only by his family but by many more.
Between January and April CRY featured in 47 print articles, including 1 national article and 3 magazine articles. CRY also featured in 127 online articles.
‘Hidden killer claiming young lives without warning’
Kentish Gazette
This article told the stories of four young people from Kent who died suddenly, and covered the work of CRY and how our interest list of people waiting to be screened was increasing during the pandemic.
Published 4 February 2021
‘Surprise donation pushes family past £50,000 target’
Frome Times
After realising that Shirley and Dave Wort had almost raised £50,000 for CRY in memory of their son Julian, one of Julian’s best friends, Kevin Rumming, and his wife Laura donated the £2,503 needed to reach £50,000.
Published 18 March 2021
‘College closes in on its round the world target’
Buxton Advertiser
Students and staff from Hope Valley College set themselves the challenge of walking, running or biking a combined total of 40,075 kilometres to raise funds for their annual heart screening events with CRY.
Published 29 April 2021
‘Heart conditions in young “going undetected”’
BBC, 3 February 2021
This article helped highlight how many CRY screening events were cancelled due to the pandemic. Read at bbc.in/37FTrMs
‘Sudden death: Partner’s heartache after her fiancé died aged 31’
BBC, 5 April 2021
Danielle Riley lost her fiancé Andy Key suddenly when he was just 31 years old, and has since been raising funds and awareness for CRY.
Read at bbc.in/3xKy6gh
‘“My healthy sister never woke up”: The reality of Sudden Adult Death Syndrome’
The Telegraph, 15 April 2021
This article provided further coverage of the BBC documentary “Sudden Death: My Sister’s Secret Killer” to raise awareness of the incidence of young sudden cardiac death, the importance of screening and bereavement support, and CRY’s work.
Read at bit.ly/2W27klD
For links to online, press, television and radio coverage related to CRY and young sudden cardiac death visit www.c-r-y.org.uk/inthemedia
By fundraising for CRY you will be helping to:
• subsidise CRY’s national cardiac screening programme
• fund CRY’s bereavement support programme to provide counselling and support to affected families
• support research into young sudden cardiac death (YSCD)
• develop the myheart Network to support young people living with cardiac conditions
• provide all CRY literature and information free of charge
• develop the CRY Centre for Cardiac Pathology (CRY CCP), and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology
The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD.
Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, sponsor forms and other resources.
If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.
Visit www.c-r-y.org.uk/charityfundraising-challenge-events for more information or contact the CRY office for a fundraising ideas pack.
The urgency of CRY’s mission and the quality of our work has compelled many high-profile personalities to give their time to become CRY Patrons. For more information visit www.c-r-y.org.uk/about-us/patrons
Sir Ian Botham OBE Honorary President of CRY
“It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.”
Rob Andrew MBE
Clive Clarke
Evans
• John Barrowman MBE
• Jack Clifford
• Jeremy Bates
• James Cracknell OBE
• Baroness Ilora Finlay
Michael Hoey
KSG
• John Inverdale
• Rob Key
McDowell MBE
MBE
Scott
• Simon Halliday
• Tom James MBE
• Gary Longwell
• Lee Mears
• Ben Brown
• Nick Easter
There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we also accept credit/debit card donations over the phone.
For further information please call the CRY office on 01737 363222 or visit www.c-r-y.org.uk/donations
All your help is greatly appreciated.
1. CRY Update magazine
Postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Founder; supporters’ fundraising; articles about screening, myheart, research, pathology, raising awareness initiatives, massparticipation fundraising events; and much more.
2. CRY enewsletter
Monthly email newsletter; 3 emails per year with links to the online version of the Update magazine; plus occasional emails about major CRY events and initiatives.
• Pixie Lott
• Bill Neely
• Sir Steve Redgrave CBE
• Roger Taylor MBE
Townsend MBE
Walliams
•
• Jonny
• Kathryn Harries
• Pat Jennings
• Emily Maitlis
• Lawrence Okoye
• Vincent Regan
•
OBE
• Graeme
• Phil Packer
• Joe Root
• Professor Gaetano Thiene
• Andrew Triggs-Hodge MBE
• Alison Waters
• Matt Wells
• Andy
• Gregor
• Andrew Trimble
• David
• Sir Clive Woodward
OBE
If you would like to subscribe to – or unsubscribe from – either of these mailing lists, please let us know:
• Complete the online form; www.c-r-y.org.uk/subscribe
• Call the CRY office; 01737 363222
• Email the CRY office; cry@c-r-y.org.uk
When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD).
Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions.
These conditions include hypertrophic cardiomyopathy (HCM) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS).
CRY aims to reduce the frequency of YSCD through raising awareness amongst the general public and medical community, providing expert cardiac pathology, improving early diagnosis through screening, supporting young people diagnosed and funding research.
1 in 300 young people CRY tests will have a potentially lifethreatening heart condition.
CRY believes cardiac screening should be available to all young people aged between 14 and 35.
CRY also works to guide and support families and close friends affected by YSCD.
We provide information to explain what the coroner does, bereavement support, help with NHS referrals and advice on the procedures that usually follow a YSCD.
In 80% of cases of young sudden cardiac death there are no prior
We are very proud that over 80p in every £1 we spend goes into supporting CRY’s key aims. Without the fantastic support we receive this wouldn’t be possible.
symptoms of a heart defect.
CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge.
For detailed information about cardiac conditions and CRY’s range of literature visit www.c-r-y.org.uk/ medical-information
CRY is grateful for grants or donations from trusts and foundations. We would like to thank the following for the generous support they have given us:
