As Deputy Editor of the CRY Update it is my responsibility to put together this newsletter, and ambition that you find all the CRY news, events and fundraising in these pages to be of interest.
I always endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to get in touch with me if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section.
I would appreciate hearing from you at tom@c-r-y.org.uk or on 01737 363222 if you have any feedback or comments regarding previous issues. Thank you for your help.
Alison Cox MBE Founder
Professor Mary Sheppard Consultant Cardiac Pathologist
Head Office:
Unit 1140B
The Axis Centre Cleeve Road
Leatherhead
KT22 7RD
No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor. The Editor welcomes letters but reserves the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of Cardiac Risk in the Young (CRY). Articles pertaining to health-related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.
Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more.
Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised.
If you can supply a writeup or photos for any fundraising activities you have taken part in, please email tom@c-r-y.org.uk
Images of CRY Patrons and Members of Parliament throughout have been highlighted in red.
For more details regarding the events shown on the cover, please turn to the corresponding page references below. Images are listed clockwise from top left:
1. Supporters taking part in the CRY Virtual Heart of London Bridges Walk. Page 12.
2. An event stand at a family fun day, held in memory of Rebecca Phillips. Page 32.
3. A donation from the Tonbridge and Malling Borough Council. Page 41.
4. A sponsored walk, held in memory of Thomas O’Neil. Page 31.
5. Supporters taking part in the Three Peaks Challenge. Page 40.
6. An event from Elizabeth Webster’s year as Mayor of Garstang, supporting CRY in memory of Matthew Hesmondhalgh. Page 24.
7. Supporters taking part in the Revolve 24 event in memory of Ben Forsyth. Page 20.
8. Ellie-Mae Topp completing a skydive in memory of Bethany Mycroft. Page 30.
9. Supporters taking part in the CRY Virtual Heart of London Bridges Walk. Page 12.
10. The team at the CRY Centre for Cardiac Pathology. Page 9.
11. Some young supporters taking part in the CRY Virtual Heart of London Bridges Walk. Page 12.
12. Supporters from Mount International United Services Ltd taking part in a mud run. Page 39.
13. Supporters taking part in the Thames Path Challenge in memory of Carli Lansley. Page 27.
Challis
Representative in Surrey
We first found out about CRY in January 2006 when we lost my brother to undiagnosed arrhythmogenic right ventricular cardiomyopathy (ARVC) after he collapsed on the football pitch.
After family screening, I too was diagnosed with ARVC and had my first defibrillator fitted in May 2006.
I began to attend CRY’s myheart meetings and everyone was so friendly and welcoming. Since that first meeting I have become one
of the ‘old hands’ and welcomed many new faces, and as a group we have always wanted to help raise the profile of CRY.
When CRY asked me to become a Representative it seemed the natural next step to help make more people aware of young sudden cardiac death, and by talking from personal experience I hope that I can help make the message get through.
If you would like more information about the myheart network and the support services that we offer, such as the literature we provide and information on different cardiac conditions, you can visit the myheart website at www.myheart.org.uk.
There is also the myheart YouTube channel, which includes content such as videos sent in by members sharing their experiences of being diagnosed or undergoing certain tests, as well as myheart cardiologist Dr Michael Papadakis answering a range of frequently asked questions.
You can go to the myheart YouTube channel here: https://bit.ly/2QjiTyl
And here’s where you can find the myheart network on social media: @myheartnetwork
Dr Steven Cox CRY Chief Executive
@Drstevenjcox drstevenjcox
Thank you for everything that you continue to do to support CRY and raise awareness within your local communities. Included in this section are a number of media stories from May to August, as well as information about some of CRY’s events in this period.
June 15
CRY has shared a range of information and advice on our website on all aspects of dealing with the COVID-19 pandemic, and we also held a webinar in June that gave people the opportunity to hear directly from some of our doctors.
The webinar, “Guidance for ‘Safe Exercise’ in the COVIDera and how to prepare for a return to sport”, featured a talk from CRY Consultant Cardiologist Professor Sanjay Sharma on the facts and fiction of exercise in the COVID era, a talk from Professor Mathew Wilson on how to train and return to exercise, and a presentation from Dr Michael Papadakis looking at cardiac evaluation before returning to sport which brought the webinar to a close.
You can watch the full recording of all the presentations in the video above.
June 22
Professor Sharma was interviewed on Sunrise Radio to talk about a variety of topics, from how he first got started with CRY, to the importance of cardiac screening.
“I first became involved with CRY in 1996 when I was a middle grade doctor at St George’s Hospital, carrying out research in heart muscle diseases that cause deaths in apparently young healthy people, including athletes,” Sanjay began. “At that point I met a great woman called Alison Cox, who was the former Chief Executive of CRY. She was committed to diagnosing silent heart diseases in young athletes, because these are the sort of people that made the newspapers.”
Sanjay went on to talk about how Alison’s connections with the Lawn Tennis Association helped tennis become the first sport where athletes were screened in this country, and how screening in other sports expanded and how his research developed.
“I was quite staggered when it became clear that there were at least 600 deaths in England and Wales each year. That’s around 12 per week, and it doesn’t sound like a lot, especially with this COVID-19 pandemic. But if we consider that each one of them lost between 50 and 70 years of life, then it becomes a very tragic statistic... And over the past 20 years I noticed that we’ve made major strides in reducing heart disease in the UK, and this is resulting in fewer heart attacks and fewer deaths from heart disease. But these benefits have really only been translated to into a longer lifespan in middle aged and older individuals. We’ve not really done very much to reduce the risk of sudden death in young people.”
Sanjay explained how CRY’s research and screening programme has helped transform our understanding of young sudden cardiac death, and also talked a bit about his personal and professional background. He’s been an incredibly important part of CRY over the last two
decades, and our research and screening programme couldn’t have developed in nearly the same way without him. You can listen to the full interview by playing the video on the left.
Sue Dewhirst has been supporting CRY since the sudden death of her son, Matthew, in 2012. She went on BBC Radio Shropshire to share her story, and to talk about how people can continue to help CRY during the COVID-19 pandemic. Like CRY and all of our supporters, Sue was impacted and also had four of her CRY screening events postponed because of it.
“Well, for many years they couldn’t find the issue, because his heart looked perfectly normal,” Sue explained when talking about what was wrong with Matthew’s heart. “But we donated his heart so the research team now at St George’s Hospital, Tooting have, through new research, found that he has actually got a genetic fault. It would have shown up as an electrical fault.”
With the Virtual Heart of London Bridges Walk just a few days away at the time, Sue also helped promote the event.
To learn more about how you can help raise awareness online, please go to CRY’s website here.
While the typical kind of Heart of London Bridges Walk that we had planned to help mark CRY’s 25th year unfortunately couldn’t go ahead due to the ongoing pandemic, this year’s event was still a special day. As we were unable to gather in person to walk in memory and support of young people, we organised the Virtual Heart of London Bridges Walk. This gave people the opportunity to still complete their own walk in their different areas of the UK, with over 300 people pre-registering to take part and many more joining in on the day. Speeches from
CRY Founder Alison Cox, Professor Mary Sheppard from the CRY Centre for Cardiac Pathology, Professor Sanjay Sharma and I were broadcast live on Facebook and YouTube, followed by a 2-minute silence.
We also turned the homepage of the CRY website into a message wall, where over 200 people uploaded photos and messages to remember those they have lost.
We are so grateful for everyone who took part despite the different circumstances, and for helping this event to be special as always. To read the full write-up of the event, turn to page 12.
July 3
CRY’s supporters have been creative in their efforts to keep raising funds and awareness in 2020. Mark Maguire wanted to support CRY in memory of his close friend and fellow cyclist Ben Forsyth, who died suddenly in 2018, and came up with a massive challenge. Mark decided to run 30 marathons in 30 days, and raised thousands of pounds and awareness for CRY along the way. He also went on BBC Radio Cumbria to talk about his challenge and spread word of CRY.
“It’s more than just the donations, and it was inspiring people, getting people out and running, getting people laughing and happy and I loved it,” Mark said. “I loved seeing that. I never thought I could do that and I never thought I would have done that in this. It was a challenge for me and I wanted to challenge myself and see what I could do, mentally and physically. I really enjoyed actually pushing myself, getting money for CRY and stuff like that... This is the biggest win I could ever get.”
We are so grateful to all of our supporters for going above and beyond to come up with new ways to support CRY. If you would like suggestions on how you can get involved and fundraise, you can visit our website here.
Social media is a vital part of how CRY interacts with supporters and, first and foremost, raises awareness of young sudden cardiac death and what can be done to tackle it – from preventative measures (screening) to bereavement support for those affected by a tragedy. In the CRY Online segment, we look back at the fourmonth period the Update covers and include a small selection of social media highlights, such as Facebook posts that reached an amazing amount of people, or supporters who tweeted memorable photos at us.
Due to the COVID-19 pandemic and there being so many restrictions in place, social distancing measures and many fundraising events being cancelled, it hasn’t been possible to go out and raise awareness in the same way this year. This has made social media even more important than normal, so it’s been great to see our supporters continuing to get involved online and help as share key messages and raise awareness.
Posts on CRY’s main Facebook page recorded 575,375 impressions (the number of times a post is featured on someone’s feed) in this period, with one of our top posts in June sharing a story published in the Express. This article featured some comments from CRY Chief Executive Dr Steven Cox and CRY Consultant Cardiologist Professor Sanjay Sharma about the impact of cancelled screening events due to COVID-19, as we typically screen over 30,000 young people in a regular year. The article also shared the story of 16-year-old Blake Azoug, who was diagnosed with Wolff-Parkinson-White syndrome after his ECG at a CRY screening event picked up an abnormal heart rhythm. Blake has now undergone successful surgery, and his story serves as a reminder of how vital screening is and how important it is that we return to holding these events and securing large enough venues as soon as it is safe to do so.
Thanks to the homepage of the CRY website being used
as a message wall where people could upload photos and messages in memory of those they have lost, as well as social media, hundreds of people were still able to engage with our Virtual Heart of London Bridges Walk. This event is always an important day in our calendar as people come together to remember young people and raise awareness, and even though things were so different this year, it was special to see so many people taking part in this virtual event.
Some of our most popular Instagram posts from this period also shared photos of our supporters getting involved with the Virtual Heart of London Bridges Walk.
Interacting with us on social media is an easy way to keep up to date with any CRY information you might need. You will receive updates on upcoming events and screenings; and photos from fellow supporters. Every share of a post helps spread awareness about CRY a little further. So, if you’d like to follow along, here’s where you can find us:
As always, we had a wide range of engagement and support on Twitter during this period. As we continued to push forward CRY’s key messages and statistics as well, we recorded just under 500,000 impressions (the number of times a tweet is featured on someone’s feed) from May to August.
Abby Lang has been supporting CRY for years and has been tirelessly campaigning in Scotland to rally the support of MPs. In July, she shared a great update that all Scottish MPs had signed CRY’s pledge to support our efforts to establish a national strategy for the prevention of young sudden cardiac death.
CRY’s Consultant Cardiologist Professor Sanjay Sharma oversees our screening programme and has also been instrumental in leading CRY research over the last two decades. One of our blog posts looked at Professor Sharma’s time with CRY, and his tweet sharing the new article (and adding that joining CRY is the best thing that’s happened in his medical and academic career) helped it reach an even wider audience.
In May, CRY Patron Ian Botham announced the launch of Beefy’s Charity Foundation’s auction, which was being held to raise funds for several different charities, including CRY.
CRY is now reviewing how public screening events could feasibly be held with new procedures for social distancing and PPE. Whilst CRY has now established protocols for screening with social distancing and PPE, there are still a number of factors that have to be considered before we can start to offer public events.
All of CRY’s public screening events are held in venues such as offices, schools, universities, health centres, sports venues, gyms and we appreciate many of these facilities will no longer be available or seen as suitable venues for screening and the associated increase in footfall.
There are many other factors which need to be considered when holding public screening events, but, as long as the Government guidelines permit us to take forward public screenings, the key issue is now identifying suitable venues (i.e. venues large enough to accommodate social distancing rules, one way system, three waiting areas, separate entrance and exit, ample parking…).
Many of the screening events booked over the coming months may be unable to accommodate social distancing and will therefore have to be postponed, unless a more spacious venue can be found in time. However, our aim is to identify suitable facilities to enable regional screening centres to open up. As such, we would welcome being alerted to details of spacious, potentially appropriate venues close to you or to which you may have a personal or professional connection, which could be made available to CRY to help us reestablish the screening service.
CRY Chief Executive Dr Steven Cox commented on our screening programme and how we can aim to continue in a recent post on our website:
“What we desperately need – once the current tiers are eventually eased – is access to suitably large venues. CRY’s families and fundraisers would usually be able to secure the use of schools, sports clubs, 6th form colleges, universities, community centres and church halls etc. at no charge. Understandably, these types of venues cannot currently invite any additional people to come onto the premises. So, what we’re hoping for – as soon as it is appropriate to do so – is to hear from the owners and managers of large and spacious venues such as sporting arenas, mothballed stadiums, often with large, modern – and currently empty – conference facilities, which might be appropriate for hosting CRY screenings.
While screening events are currently postponed and we are not in a position to offer any new bookings in your region, you can still register your interest by going to the www.testmyheart.org.uk website and we will email you when screening events are available again.
As a team, we are doing our very best to monitor and mitigate the impact of COVID-19 on our services. In line with Government advice, the CRY office is closed but members of our staff are working from home and will be available to assist with any queries you may have, either via phone or email.
The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart.
Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire.
If a more detailed image is needed (about 5–10% of individuals), an echocardiogram can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform.
The screening programme is under the aegis of Professor Sanjay Sharma.
We appreciate your understanding at this time and we are sure you’ll agree that the health and wellbeing of all our supporters, staff and those who CRY strives to help on a daily basis, is our primary concern.
Dr Cox adds: “We are doing all we can to resume CRY’s screening programme safely, rebooking events and working through our ‘backlog’ – and to ensure that awareness of the importance of cardiac screening in young people does not diminish.”
While the world struggled to cope with the COVID-19 pandemic, facing lockdowns and alternative or reduced work schedules, the team at the CRY Centre for Cardiac Pathology has remained open throughout, continuing to provide our vital service in these challenging times. Professor Sheppard is proud of the hard work done by all the team. We had 175 heart cases and 93 spleen cases from May to August 2020.
Susanna Cooper, Laboratory Technician Khari Edwards, Laboratory TechnicianOur database forms a valuable source of research within St George’s clinical academic cardiology group, resulting in publications in highimpact journals. Recent figures for both hearts and genetic material sent to our department are shown below
We were able to make a diagnosis of the cardiac cause of death in all cases, with the majority being sudden adult death or cardiomyopathies (75% of cases), all of which are important for family screening.
On the left is a map of heart referrals across England and Wales by coroner’s area for 2020. You can see that London has the highest referral rate and we are receiving a good number of cases nationally, but there are areas where we receive no cases marked in grey.
Our research fellow Jo Westaby has upgraded his degree to PhD ongoing for the next 18 months.
Former CRY Research Fellow
Chris Mileshas submitted his PhD on SADS and arrhythmogenic cardiomyopathy and Brugada syndrome for examination on December 8.
We also continue to give evidence at inquests via Zoom.
To learn more about the research completed at the CRY CCP and Professor Mary Sheppard’s work, you can watch her presentation at the 2019 CRY Family Research Day on our YouTube channel here: https://bit.ly/2Dmg6RU
I finally confirmed that Sanjay was not your average person when he told me – during a discussion we were having on reminiscing – that he started writing his thoughts and experiences down when he was four. He was a serious, curious child and wanted to know about and remember everything. He already had decided to be a doctor – there seemed to be so many of his relatives getting ill and he was fascinated by the doctors all coming and going and able to make them better – he saw doctors as some sort of miracle people and determined he wanted to be able to do miracles too. From the age of four it never occurred to Sanjay to ever be anything else but a doctor.
His parents had met and married in the U.K. but decided, under pressure from his uncle, to return to Uganda which had just got its independence. Their standard of living rocketed and they enjoyed a beautiful house, servants and nannies. Most of all he thrived on the private education afforded them. He delighted in reading, learning, and discovering challenging new opportunities. At primary school the teacher recognised his ability and put him in the class above to better stimulate his appetite for learning.
The family returned to the U.K. just before General Idi Amin expelled all Asians out of Uganda. Sanjay was about to have his eighth birthday and remembered the stark contrast clearly. Their accommodation became a bedsit above a butcher’s shop in Walthamstow; he struggled to understand the cockney accents of the local junior school children, and they could not resist cruelly taunting him and his two sisters. He missed the security of an extended family close by. It was so rainy and cold. Adjusting was hard work and life took its time to slowly start improving. However – because of Idi Amin’s eviction of Ugandan Asians – his grandparents arrived and he and his siblings greatly benefited from their love and understanding as their parents worked hard to support them.
Both parents had been educated in the U.K. and his father soon settled into a job as an administrator in the NHS whilst his mother became a Citizen Advisor. They were delighted by now to have been able to move to North London where the teachers at Sanjay’s local secondary school were quickly alerted to his academic ability. His aunt and uncle had both been head teachers at primary schools in Uganda, so education had always been impressed on them as a
critical part of their lives, and working hard at junior school was a natural thing to do. By the time he went to secondary school there was an expectation that he would do well. And he did for a while until the third year when he started enjoying the distraction of an attractive social life. He lapsed into lazy indifference and persuaded himself ‘just getting by’ was ok. His wake-up call came just in time when his O Level results proved only marginally good enough to be permitted to sit his choice of A Levels.
He did not have to be reminded that ‘just sitting’ his exams was insufficient. Securing high grades were the only opportunity he would have to enter medical school. His headmaster was confident, however, and Sanjay consequently achieved the correct predictions from his tutors who then encouraged him to enter medical school.
Sanjay’s school did not have a reputation for high grades and his teachers kindly advised him not to be disappointed if he found he had not been able to secure a place in medical school because he would be confronting significant competition from the country’s top universities. As the A Level exams drew closer Sanjay became increasingly aware that the opportunity of doing what he had always dreamed of lay in his hands. That only he could now take it away.
Sanjay’s mother had trained as a nurse at Leeds Hospital and spoke fondly of it in his childhood, so he was delighted when he learnt that he had been selected by Leeds medical school! On their first day the students were given a brutal introductory talk by the Dean, informing them that 20% of the intake would be expelled within 12 months for unsatisfactory progress. Sanjay immediately became concerned he might struggle, but in fact found that he loved every aspect of medicine ranging from the basic sciences to the clinical aspects of several sub-specialities. He was greatly relieved to finally learn that he had qualified with three distinctions, as well as obtaining the ambitious BSC degree in biochemistry in relation to medicine which he had included in his studies.
After working as a junior doctor at 3 major hospitals he decided to specialise in cardiology because cardiovascular disease was the biggest killer in the western world and he knew there had been several exciting advances in the
management when he was a junior doctor. There were a number of outstanding opportunities produced for him at this crucial time that were unforgettable. His clinical mentor Dr Hackett contacted world expert Professor Bill McKenna when he found Sanjay wanted to specialise in hypertrophic cardiomyopathy, and he subsequently secured a place as a Research Fellow at St George’s Hospital. He had determined athletes would be his particular specialty and again fortune fell in his pathway (and mine!) when his ‘Prof’ introduced us. I had just started CRY with the ambition of creating a screening programme that would initially be limited to young athletes but would expand to all young people between 14 and 35. We fought several (often bloody!) battles together thereafter promoting screening, which soon became an established part of British sport.
Another huge development was when the Medical Director of the London Marathon, Dan Tunstall Pedoe, asked him to be his deputy with a view to Sanjay taking over 3 years later in 2007. Things seemed to happen very quickly after that! Sanjay was promoted to Consultant Cardiologist at Lewisham Hospital, became CRY’s cardiologist for our screening programme, and developed CRY’s research team. This provided the opportunity to not only gain supervision skills, but also crucially achieve multiple high quality publications in major cardiac journals.
Sanjay compounded his rapidly developing reputation when, age 44, he became the Professor for Inherited Cardiac Disease and Sports Cardiology at St George’s Hospital. His research, sometimes tackled at midnight when the house was quiet, quickly gained an international reputation and currently is responsible for 20 major publications annually. Perhaps his most revealing quality is exposed in how much he values having developed an established teaching course for the Membership of the Royal Colleges of Physicians of the United Kingdom, which became the largest in the world and during the period of 1994-2017 assisted over 7,000 young people to pass their exam.
As the weather edges away from sunshine and towards its drab, bleak preparations for the winter months ahead, I look back on my 25 years with CRY considering the person who has quietly had the most impact and for the longest time... It was 1996 and Sanjay had just arrived at St George’s. I was looking for an opportunity to get CRY into the news and secured a desperate, but fully funded (!) two day trip to Jersey to raise awareness of Gambor, an orangutan at Jersey Zoo that suffered from hypertrophic cardiomyopathy and was attracting national attention after fathering a precious off-spring due to a newly tried medication.
I did not know Sanjay but he suddenly
contacted me after learning of my prospective trip, and courteously requested whether he and his wife could join me as she was very keen to visit Jersey Zoo!
And those two days contributed more to how I got to know Sanjay than any other later experience. We were both committed to our ‘day jobs’ but the unusual distraction of a highly publicised orangutan, who Sanjay was requested to examine and coolly accepted as a VIP patient, is what I believe gave me an extra dimension in understanding him and so contributed to developing the friendship that has bound us.
Sanjay’s unique talent is not only to be extraordinarily capable of doing three things at the same time, but most importantly stay loyal to his beginnings, not be seduced by glamour, and be sensitive to the difficulties of others less clever than himself!
Professor Sharma is the head of research for the cardiology clinical academic group at St George’s, University of London. In addition to being the director of the largest sports cardiology unit in the UK and overseeing CRY’s screening programme, he’s served as the Medical Director for the London Marathon since 2007 and the Medical Director for Prudential RideLondon since 2015. In 2012, he was the lead cardiologist for the London Olympics. He’s been involved in countless pieces of influential research and has over 250 PubMed citations. This includes highlights such as a special piece on cardiac screening in young athletes he wrote for the Journal of the American Medical Association in 2015; the ground-breaking international recommendations for the interpretation of ECGs published in the European Heart Journal and Journal of the American College of Cardiology in 2017, which helped transform the way we carry out screenings; and a paper in the New England Journal of Medicine in 2018, showing that the incidence of sudden cardiac death in footballers is higher than anticipated and ECG screening is essential in detecting underlying conditions.
Over 300 people pre-registered to take part in the event, with many more participating on the day. At 10.50am, live on Facebook and YouTube, the speeches started to introduce the event, followed by a 2-minute silence at 11am.
CRY Chief Executive Dr Steven Cox introduced CRY’s Founder Alison Cox to begin. “We are absolutely devastated that today we can’t be with you, that we can’t be all together,” Alison said. “We look forward to this day all year, we look back on how last year was, and we look forward to how we are going to make this year and hopefully have
more and more people that find it really helpful to be able to come to this walk. Able to walk together, talk together, meet each other, find people that you have got everything you can imagine in common with having suffered the terrible tragedies that you all have.”
Professor Mary Shepherd, CRY’s Consultant Pathologist, spoke next, thanking our supporters for all they do. “I hope in the future that we will meet again at the Bridges Walk and again talk about all the exciting developments that are going on at the moment with research into sudden cardiac death. Thank you very much for all your support.”
Next to say a few words was Professor Sanjay Sharma, CRY’s Consultant Cardiologist, who spoke about the importance of CRY’s research. “This year you will walk in your gardens and the local park, and I’m extremely sorry that neither I or any member of the CRY charity group will be able to join you, but I can promise you that you will be in our thoughts.
“Without your support there is no chance that we could be a formidable charity. The money that you have raised has facilitated screening, research and training of young doctors. Indeed, the money that you have raised has enabled us to screen 200,000 young individuals. I can tell you now that
one in 300 of those individuals have a condition that could potentially kill them, and my calculations suggest that around 700 young people have been identified with a serious cardiac condition since this programme began. We also know from our research that 60% of those people diagnosed receive some sort of treatment in the form of medications, ablation or a defibrillator suggesting that screening really does alter outcomes.”
To finish, Dr Steven Cox went on to thank our supporters during this unprecedented time. “It is incredible how, even with everything that has happened around us, you are still finding new ways to support us. Whilst we know that the next 12 months are going to be very tough, we also know that we are going to come out of this as strong as ever before.
“The strength of CRY has always been that you, the families, have decided to make a difference for others, through raising awareness and funding screening and research you are saving young lives and you are stopping other families go through what you have been through.”
Following the speeches, Dr Cox introduced the 2-minute silence, providing the opportunity to reflect. Shortly after, CRY families departed on their own Bridges Walk across the UK, remembering those young individuals who have died suddenly.
CRY’s homepage transformed into a digital message wall,
enabling supporters to upload messages and photographs with their thoughts and feelings for the day (like the post shown below). This offered a space to connect with other CRY families. A total of 234 messages were uploaded to the digital message wall with touching displays, which remained live for 24 hours.
The Virtual Bridges Walk webpage also offered downloadable back signs for walkers to print and pin to a top or display in their window, a Bridges Walk Facebook frame, as well as other activities including a scavenger hunt at home or a ‘guess the name of the CRY teddy’ competition which had 17 entry guesses.
We would like to say thank you to all of our supporters for their kind continued support during this difficult time. The CRY Heart of London Bridges Walk is always an emotional day, and it is a special event for everyone involved.
Thank you to all of our supporters for their understanding whilst we organised a very different event this year. We look forward to welcoming you back in 2021 in Southwark Park.
Entries appear in the following section according to when CRY sends written receipt for funds raised. The following fundraising was receipted from May to August 2020.
Unfortunately, due to the size of the Update, with so many fundraisers to acknowledge and there being some overlap with memorial fund names, there can occasionally be mistakes. We always strive to enforce new methods to
Michelle Bailey sent in £100 raised from a number generator fundraiser with Sugar Rush Confectionery in Hartlepool.
Jessica Chu took part in the Heaton Park 5k and raised £250.
Susan Carey sent in £405.30 representing donations received in lieu of floral tributes in memory of her mother.
Robin Beck and Ashley Beaumont-Thomas took part in the Great North Run and raised £1,278.72.
Bob Bailey sent in £445 representing donations received in lieu of floral tributes in memory of his mother.
eradicate such administrative errors, but we apologise if you have ever been affected in some way by this.
If you see a mistake in the Update or you have any questions, please do not hesitate to contact me at tom@c-r-y.org.uk.
Mrs Baker donated £100 in lieu of floral tributes in memory of her husband.
Jody Barford took part in the Great North Run and raised £737.30.
Sam Barker sent in £500.
• Mike Fleet sent in £125 raised from autographs and a collection box.
• Keith Morley donated £150 in respect of book marks purchased from Mike Fleet.
• Lynn and Tony sent in £719.37 raised from Naama Gelbers evening of belly dancing, a collection pot at Frogpool Manor Restaurant and talks.
• Rotary Club of Greenwich sent in £1,000.
Karyn Ashcroft took part in the Great North Run and raised £256.49.
Lucy Skitt completed a 22 mile run for Sarah and raised £147.
Baroness Joan Bakewell donated £400.
• Nigel Poole and Sally Griffin took part in Dry January and raised £100.
• Sally Griffin donated £100.
• BAE Sytems sent in £1,000 to match funds raised by their employees through a cake sale in February.
• Waitrose in Havant raised £333 through their green token Community Matters scheme.
• Hazel Blackman upcycled t-shirts to make dog tuggers and raised £114.
• Hazel Blackman forwaded £160 donated by her friend, Liz Beavan.
• Susan and Hunter Blair donated a further £205.
• Susan Blair sent in £465.
Karen and Steve Blease sent in donations totalling £1,395, including: £400 from screening donations; £720 from Welwyn Garden City Ladies FC; £175 from Bengeo Tigers FC; and a £100 donation from Andrew White.
Lesley Ann Bryant donated £100.
Siobhan Booker sent in £245.89 representing donations received in lieu of floral tributes in memory of her husband.
Keith Ayres took part in the Bristol 10km Virtual Run and raised £1,275.
Daniel Pine donated £440.
John Marshall sent in £150 from the RHC Golf Society (Milton Keynes).
Michelle Bourne sent in donations of £380 raised by the patrons of The Eagle Public House Monday Club following the retirement of the publicans, Annette and Dave.
Max took part in the Mini Great South Run and raised £310.
Philip Broad donated £100 to commemorate Emma’s birthday.
• Paul and Jenny Hayes celebrated their 70th birthday and raised £220.
• Judy and Dennis sent in £200 raised by Steve James at The Plough in Ratby.
Rebecca Marshall sent in £8,288.50.
Ruby Adshead sent in £1,000 from Lomond after her husband nominated CRY to receive the donation.
Hillary and Bill sent in £815, including: £480 raised from the sale of marmalade; £200 raised from the sale of preserves during lockdown; and a further £135 raised from the sale of marmalades and jams.
William Hall donated £211.87.
John Bush raised £450 through his 70th birthday celebrations.
Tanya Svilar and Maria Williams took part in the Fulham 10k and raised £428.
Alice and Trevor Wheaton donated £100 in memory of their grandson.
• Charlotte West took part in the Great North Run and raised £575.
• Richard Boden took part in the Three Peaks Challenge and raised £595.
Rick Purcell took part in an Ironman 140.6 Challenge and raised £1,040.
Sweena Chauhan sent in £700.
Helen Duffy sent in £100 in lieu of gifts for Carole English’s birthday.
Helen Barnes sent in £500 raised through the charity green token scheme at Asda, Newport, Isle of Wight.
Karim Clapham donated £100.
• Nikhill and Radhika Khosla sent in £450 in memory of their friend.
• Arvinder Gill donated £100.
Lynne Barley sent in £110 raised at the Dressage at Music demonstration at The Croft Equestrian Centre in Padworth Common.
Nicola McCulloch took part in the Great North Run and raised £465.
Chloe Cotter and Ali Arif took part in the Royal Parks Half Marathon and raised a total of £5,535.95.
Ben Wright sent in £200 on behalf on Universities at Medway Alumni Spartan Rugby Team.
• Lincolnshire Cycle sent in £697 raised from a charity auction.
• Aaron Stone raised £330.01.
• Professor Steve Peters at Chimp Management raised £117.11.
• Ellen Patton ran The West Highland Way in 3 days and raised £3,405.63.
Elizabeth Crook raised £319.02.
Adrian Cartwright took part in the Great North Run and raised £446.
• David Crowhurst sent in £700 raised through a quiz.
• Peter Bradley donated £250.
Brian Cunningham donated £100.
David Cutler took part in the Forth Road Bridge Walk and raised £2,300.
• Farringtons School raised £185.51.
• Ravens Wood School raised £11,649.21.
• Elanna Fitzpatrick took part in Why Not Run and raised £185.
• Jack Stringer took part in a 2km Fun Run and raised £222.
• Matthew Heyburn took part in a 2km Fun Run and raised £100.
Heather Darby took part in the Great North Run 2019 and raised £470.
Patricia Dean donated £100.
Harneet Virdi took part in the London to Brighton Cycle and raised £2,232.
Andy and Ann sent in a further donation of £267.88.
Joannah Thelwell took part in the FITWINS Virtual Challenge 2020 and raised £605.
Sue Tydd sent in £194.50 raised through the sale of Aaron’s love candles.
Keith Burlace donated £100.
• Charles Charlton donated £350.
• Iona MacDougall and her team took part in the Supernova Kelpies and raised £1,880.
• Andrea Austin donated £1,000.
• Mario Dubois sent in £19,197.79.
• Steve Edwards sent in £1,705.
• Mike Bonsor took part in a Coast to Coast Cycle and raised £165.
• Mike Bonsor cycled from Land’s End to John O’Groats and completed multiple cycles throughout 2019, such as Tour de Yorkshire and Chase The Sun, and raised £7,846.65.
Newcastle University Students Union raised £811.35.
• Archbishop Holgate held coffee mornings and raised £242.26.
• Anne Embling sent in £308 raised through a memorial celebration with music from singer Joseph O’Brien.
• Anne Embling sent in donations totalling £251.50 raised at a street gig organised by Sam and Maria.
• Stephen Howell raised £105 ahead of the Ackworth
Richard Kimber and the LWC Cycle Club completed a cycle from Irvine to Applecross and raised £1,950.
Christian Humphries, Joe Quinn and Craig Duncan completed a Cycle Across Britain as part of Team CRY and raised a total of £10,388.53.
• Julian Craxton sent in £180 raised through a raffle at Abbey Bowman/Edge Grove archery tournament.
• Donna Faulkner sent in donations totalling £201.40.
• Jack Fowler took part in a 50+ hour charity livestream and raised £1,336.44.
• Ali Hornby, Kelly Cross, Sheralyn Thorpe, Sarah Keyes, Mairi Simpson and Steve Pryke took part in a tandem skydive and raised £2,646.97.
• Helen Heath took part in a tandem skydive and raised £120.
• Rotary Club of Langley Park donated £5,000.
• Chris Willey donated £100.
• Marie Fitzgerald sent in £1,500.
• Habib Annous donated £600.
• Capital International Limited sent in a matched gift of £1,700.
Sally Stephens sent in £178.
• Adam and friends donated £100.
• Andy Fraser, Tarryn Lowth, Darren Harris, Ruth Burrows, Rosen Petrov, Ryan Joint, John Drewett and James Phillips took part in the Cardiff Half Marathon and raised a further £2,025.74.
• Margaret Forsyth donated £100 to commemorate her grandson Ben’s birthday.
• Dan Conaway and Ewan Findlay took part in the Revolve24 and raised £2,220:
“It was an incredible event. Revolve24 is an exceptionally well organised affair, and has to be with a few hundred cyclists taking on a number of events over the weekend festival of cycling. I’m not sure it’s something that I’ll want to try and take on again. I don’t think I ever want to or have found myself in such a tough physical and mental challenge...
“The event itself started at 3pm Saturday, and it’s a simple premise: cycling for as long and as far you can until the chequered flag gets waved at 3pm Sunday. Rest when you want, eat and sleep when you need. Ewan and I had slightly different strategies for the time. I was planning on cycling for 2 hours then having shorter breaks to refill bottles and take on some food, while Ewan was planning longer 3 hour stints and slightly longer breaks. The event got underway and we both did exactly what we promised
not to do: go off too hard and get caught up with the quick guys. It was difficult not to do with the adrenaline running. We cycled together for the first 2 hours which was great to get into a rhythm but after that we didn’t particularly see each other much. As the hours ticked by it was evident this was going to be really tough; Brands Hatch is very hilly, with 3 climbs over a short 2.4 mile circuit.
“It was a warm start in the low 20’s, but as the sun set and the moon shone it was a cold night. Extra layers got put on and we continued with our strategies. As the hours ticked by through the night we both needed to rest a little longer. I grabbed a 20-minute power snooze at about 4.30am which was needed; this was the only sleep I got over the 24-hour event. We both struggled as the night drew out, but as Keith Forsyth had said, ‘if you’re not moving, you’re losing’. This stuck with me and although I needed to shorten my 2-hour stints I just wanted to concentrate on keeping the peddles turning. As the sun came up at 6.30am it brought with it some warmth and a second wind for me.
“As the event and time came to a close in the early Sunday afternoon heat, it couldn’t have come soon enough for me. I’d hit my initial target of 300 miles and didn’t want to get back on my bike! I was empty, mentally and physically.
“I ended up covering 301 miles over the 24 hours. That worked out as 126 laps of Brands Hatch race circuit and totalled over 27,000 feet of ascent over that distance. Ewan hit his target of 250 miles and over 100 laps.
Together we’d covered over 550 miles and covered more climbing than going from sea level to the top of Mount Everest, forgetting your camera, having to go down again, and then back to the top!!!
“It’s a bizarre experience and trying to stay sane during those dark and cold hours between midnight and 4am was very difficult… but something we’re both extremely proud of.” Dan Conaway.
The Air Training Corps, Forres Squadron sent in £100.
Celia Byford-Fox sent in £200 raised through the sale of jewellery.
Julie Boulton took part in a Snowdon Hike and raised £858.
Linda Holland took part in a sponsored walk and raised £115.
Jackie German sent in donations totalling £378, including: £278 from collection pots in her brother’s shop; and a £100 donation from her sister-in-law, Kay.
Lee Thompson, Cameron Thompson, Richard Branch, Beth Duchesne, Beth Maskell, Charlotte Sykes and Tom Watts took part in the Tour De Blackpool in and raised £3,295.
Linda Goodwin sent in donations totalling £254 raised through shopping and grass cutting for a neighbour, a plant sale, and a boot sale.
Alan Gore donated £600, and wrote the following:
“I could not ask you what you’d like for your birthday again this year. So this money is my present to you, it’s the one thing I can do.
“You’re still helping others, Matt, through a fund that bears your name.
“The dreams you had were taken from you, let’s try and stop others suffering the same.
“This photo was taken just the night before it happened, your last gig sold out. Then cruelly taken from us, but your music will always play in my heart.
“So to support the work that CRY does should be important to us all.
“I love and miss you every day, Matt, you’re forever in my thoughts.”
Mark Tipping organised the Tipping’s 2019 charity Christmas lights and raised £2,875.
• Tom Green sent in £183.44 raised by Ashley YFC.
• Tom Green sent in £200 raised by Judy’s jams and a collection pot.
Owen Griffin gave a talk to the Rotary Club of Spalding and Welland and raised £150.
Pete Hawkins donated £100.
• Marc Hadfield sent in £250.
• Abraham Garretts donated £300 in memory of his grandson.
• Andy Hunt had a garage clear out and raised £105.
• Susan Gardner donated £100.
Sam Hall sent in £200.22.
Brian Worthington sent in £1,000 donated by the Masonic Unity Chapter 2341.
Mohan Kewalarmani donated £100.
The Savannah Charitable Trust in conjunction with the London Beach, Country, Hotel, Spa & Country Club sent in donations totalling £540 raised through a weight loss challenge.
Ian and Debbie forwarded a donation of £4,000 from Hope Valley Young Farmers.
• Angela Hancock sent in £12,262.15.
• Corrina, Ian, Nev, Martin, Ian, Tom, Jon, Rich, Alex, Paul, Lee, Stuart, Matt, Mark, and Nicci took part in a Yorkshire Dales memorial ride and raised a further £220.
• Farah Rehman took part in TH96 Run and raised £158.50.
• Sam Roberts sent in £2,790:
“We held a charity event/ week where the Leeds Beckett CC squad walked, ran and biked the distance from Leeds Beckett Headingley Campus, to Desert Springs (where we were meant to be going on a pre-season tour) and back – 4,948km in 7 days. We completed it inside 6 days. Overall we raised £5,580 for three charities, with CRY taking 50%. Tommy was a member of the cricket squad during his time at university –he is always spoken about and should be spoken about for many more years to come! We will definitely be doing some more fundraising in memory of Tommy in the future.”
Ann Hargrave donated £100 in memory of her son and husband.
• Pam Woodcock sent in £290 raised through a quiz held at Driffield Town Cricket & Recreation Club, in memory of her nephew.
• Thomas Wilson took part in the Great North Run and raised £610.
Shirley Jones completed a 10k Run and raised £190.
Peter Hayes donated £450.
• Marion Hayman sent in donations totalling £195.39 raised from collection boxes at The Anchor and King’s Garden Centre, Sidmouth, and £1.16 from Marion’s grandaughter, Chloe Frisby, who donated her money left by the Tooth Fairy.
• Marion Hayman sent in £100 raised through golf games and a further £20 from Dave Powell.
Emily Thompson took part in the Cadair Idris Walk and raised £613.78.
• Paula and Barry sent in further donations totalling £1,959.88.
• Anne Whittingham raised a further £127 through taking part in the Hadrian’s Wall trek.
• Paula Hesmondhalgh sent in £422.
• Elizabeth Webster raised £1,226 during her year as Mayor of Garstang.
Jane Howard displayed VE Day flags in her garden and raised £510.
Siu Coll took part in the Wiggle Manchester Half Marathon and raised £545.
Edward Byrne took part in the One Mile A Day Challenge throughout 2019 and raised £3,465.87.
Diane, Peter, Stephanie, Richard, Joe and Lara took part in a 6km walk around Litchfield and raised £200.
Amelia Deacon took part in the Royal Parks Half Marathon and raised a total of £710.
• Assurant sent in a matched fund donation of £795.58 relating to Miranda Cooke, Sam Clewlow, Nat Wallace, Tarlie Davies and Tracy Armstrong taking part in a netball match, making a total of £3,037.58 raised from the event.
• Becky Shutt walked 100 miles in June and raised £100.
Keith Dorman sent in £100 on behalf of Studio Stereo.
Andrew Hutchinson at CP Hire sent in £8,000 raised through Big Norman’s Memorial Golf Day.
Owen Todd took part in Hux Crux 2020 > Game On Challenge and raised £110.
• Surbiton High School raised £10,250.
• Richard Trillo sent in £200.
Roddy and Nic climbed Mount Kilimanjaro and raised £11,270.01.
Clare Tideswell sent in donations totalling £4,674.50 raised through Thomas’ brother Francis’ 21st birthday celebrations and auction:
“The money was raised during an evening of great fun and lots of support from family and friends. We held a charity auction during Thomas’s brother Francis’s 21st birthday party in February. He also received donations instead of gifts.”
• Rebecca Schofield took part in the Burghley House Rat Race and raised £120.
• Jordan Graham forwarded £760 representing donations received in lieu of floral tributes in memory of Lucy’s friend, Denis Spriggs:
“£760 was raised at Denis Spriggs’ funeral on 6th March 2020. Denis was a local at the Pack Horse pub in Northborough where Lucy worked and during this time, they formed a special friendship over the years, with Lucy pulling his Guinness and listening to his daily moans.
“Denis was extremely fond of Lucy and when she passed, he had a photo of her in his office at work as a way to remember her daily. It was inevitable, with no question about it, that Denis would want to use his platform when he passed away to raise money for such a worthwhile cause.
“He was heartbroken at the loss of Lucy, and therefore, we are hoping the amount of £760 will come in handy to do more screenings locally in Deeping to prevent something like this happening again.”
Abbie Johnson donated £139.53.
Angus Johnston completed the third Memorial Walk Around The Gower and raised £810.
Zoe Muscroft and her team climbed Pen y Fan and raised £198.
• Michael Clark sent in £100 in support of Dominic Toms taking part in the New York Marathon.
• Dominic Toms took part in the Chicago, London and New York Marathons and raised a further £200.
• Kington Primary School raised £405.64.
• Andrea Joyce donated £200.
• The Sandford family donated £1,000.
• Ella Pinkney donated £1,000.
• Burghill School PTFA raised £1,900.
• Andrea Joyce sent in donations totalling £172.75 raised by Clair, Mark, Andrea and Gareth from lotto winnings.
• Angela Joyce sent in donations totalling £4,555 raised through a home meal delivery service organised by Carolyn and Clair.
Sam Smith took part in the MMU Alumni vs. Leeds Carnegie Alumni Charity Game and raised £510.
Essity UK (Dunstable Office) raised £250 by wearing red on Valentine’s day.
Jodie Wilson took part in the Amsterdam Marathon and raised £920.
• Christopher Keeler sent in £306.57.
• Claire Davies sent in birthday donations totalling £190 in memory of her best friend.
Katina Kendall sent in £670 received in lieu of floral tributes in memory of her husband.
Karen Kernot sent in £475.
Ebony Kerwood sent in £267.25 raised through a charity night.
Ros Browne at Gallagher Insurance sent in £300.
• Dionne Poth raised £1,000.
• George Wright sent in £2,152 from a charity night.
Leathes Prior Solicitors forwarded a legacy donation of £10,000.
Richie Saunders took part in Tough Mudder Classic and raised £325.
Jonathon Krish sent in £150 in lieu of a birthday gift for Judith’s cousin, Catherine Tyack.
Parvin Kukar donated £250 in honor of Rishi’s 23rd birthday.
• Faye, George and Adam cycled from London to Paris and raised £526.
• Birte Lam donated £100.
A Williams sent in £282.50 representing donations received in lieu of floral tributes in memory of her mother.
• Mark Roberts took part in the London to Brighton Cycle Ride and raised £610.
• Amanda Smith donated £150.
Rachel Bennet took part in the Thames Path Challenge and raised £514:
“I was walking for CRY in aid of the Carli Lansley Foundation. We finished the walk on Carli’s daughter’s 13th birthday. An emotional time knowing that Carli is no longer around to see her daughter reach this milestone.” Melanie Pike.
Joanne Dean forwarded a donation of £6,000 raised through last year’s charity golf day.
Chloe Lewnes sent in £200 raised in lieu of gits for her 18th birthday.
Jennifer Perry sent in £100 on behalf of Nicola Fraser.
Helene Kinsler organised the Stockport Rugby Club Charity Match and raised £455.57.
• Nicola Lee donated £250.
• Tony and Diana Smith donated £250.
Sandra Lenel raised £182.97 in lieu of birthday gifts.
Andrea Yates took part in the Liverpool Rock ‘n’ Roll Half Marathon and raised £240.
• Peter Loncaster forwarded a donation of £250 from Jamie’s grandma and grandpa.
• St George’s Day Club donated £1,000.
• Ewan, Harvey and Toby took part in a sponsored head shave and raised £1,213.33.
Kath Luke sent in £134 raised from a birthday cake sale.
• DVLA Piper (UK) Ltd sent in a further donation of £500.
• Jenny Lumley sent in £1,100, including: £1,000 to commemorate Alan’s 35th birthday; and £100 from Alan’s great aunt, Mary.
Roger Maddams raised £12,653.02 in memory of Jack.
Enya Maguire took part in Sober for October and raised £304.93.
Susan Malyon sent in £1,277.47.
Lorraine Manlove sent in £700 representing donations received in lieu of floral tributes in memory of her father.
Gillian Boothroyd donated £100.
• Jack Mason took part in Ironman Wales and raised £9,714.77.
• Gwenfair Mason sent anniversary donations of £100.
• The Wood Foundation donated £3,000.
• Fraser Healy completed a climb of Ben Nevis and raised £100.
Sarah Cordingley took part in a Colour Run and raised £195.
Sean Conolly raised £1,289.42 (including a matched fund donation of £500 from Ernst Young) through running the Royal Parks Half Marathon 2019.
David McGrath took part in the Lancaster Marathon and raised a further £4,551.
Katherine, Char, Nabeil, Lizzy, Dave, Cleo, Owain, Paul, Olivia, Adam, Gareth, Nick, Lucy, Rachel, Henry, Lauren, Rebecca and Jonny took part in the Three Peaks Challenge and raised £3,401.
• Callum and Lewis Merrick organised a football match and raised £401.66.
• Caroline Davies took part in the
Manchester 10km and raised £640.
Rachel Mitchell took part in the Thames Path Challenge and raised £1,827.
Melanie, Mike and Jill donated £100 in lieu of their squash tournament.
• Judith Hassey donated £1,000 raised through a cycling challenge.
• Rachel Pompa took part in a Remembering Owen Cycle and raised £368.
• Iestyn and Lowri took part in a cycle ride and raised £260.
Vicki Daly took part in a tandem skydive and raised £855.
Laura Chef took part in a 10k run and raised £1,630.50.
Patricia Kwari raised £230.
Louise Middleton sent in £615 representing donations raised in lieu of floral tributes in memory of her father.
Harry Barker, Toby Arnold, John Loudon and Martha Airey took part in the JPSACRY sponsored cycle and raised £1,644.
• Adrian Topp forwarded donations totalling £1,285 raised through screening weekend, fundraising and donations.
• Ellie-Mae Topp completed a skydive and raised £1,266.50.
Robert Newman forwarded donations of £165 collected at the funeral of Oliver’s grandfather.
• Kevin Ball took part in a white collar boxing fight and raised £160.
• The James Nicholas Foundation sent in £1,130.
Derek Northedge donated £150 to commemorate his son’s birthday.
Marc Byrne organised Ben’s Charity Football Match and raised £7,317.04.
• Kulbir Nagra took part in a sponsored shave and raised £840.
• Tina O’Neill took part in the JCB Mud Run and raised £100.
• Dal Mahil completed a 300km cycle through Tibet and raised £774.90.
Simon Nead raised £1,510.39 from the funeral of Maria Nead in lieu of floral tributes.
• Donna Bayley donated £100.
• Christopher Schroeter took part in the Great North Run and raised £785.
• Judith Oliver sewed face coverings and raised £530.
Mildred O’Neil sent in £5,114.90:
“We would like to thank everyone who came to Thomas’ charity night. The grand amount raised was... £5,352!! £200 will go towards a paving stone and brick at Celtic park for Thomas.
“On the day of the charity night, a sponsored walk up Ben Lomond by Thomas’ friends and family took place, raising £1,270. Scottish Ambulance Service, NHS24, Babcock Rail, Taylor Wimpey and Connocco Phillips donated towards the grand total as well.
Jean Shaw forwarded a donation of £100.
• David sent in £276.11 raised through royalties from his book.
• Julie Smith forwarded £1,483 raised through a curry night and Freddie Mercury tribute at The Silk Route in Preston.
Rob Cimino climbed Mount Kilimanjaro and raised a further £1,060.18.
“A special thanks to Saran Kelly Coleman who kindly provided the lovely food on the night. Also Donald and Tina Fraser, who had a donation box at their wedding for ‘our wonderful big pal Boom Boom Tam’.
“CRY is in the process of setting up a memorial fund in Thomas’s name. Going forward, any donations can be made direct to the fund and can be viewed on CRYs website. This really is the beginning of something great.”
Huddersfield Grammar School donated £800.
Bradford Service Centre (DWP) and Bradford Debt Centre (DWP) donated £175 raised through retirement events for Paul and Karen Padmore.
• Alfred Saad donated £100.
• Geoff Bryson of Bryson Architecture donated £300.
• Kelvin Wilson donated £240.
• Peter Patterson sent in £100 in lieu of a golf day.
Emma Johnson took part in the Great North Run and raised £695.
Sarah Pennington took part in the Marathon Walk London and raised £420.
Andrew O’Neill, Philip Inness and Chris Bartlett completed a London to Paris Cycle and raised £2,479.
• Julie Greenslade took part in a tandem skydive and raised £965.50.
• Tanya Priddis took part in a tandem skydive and raised £500.
• Nikki Login took part in a tandem skydive and raised £400.
Sharon Topple sent in £905 raised through a family fun day:
“On June 29th 2019, we held a daytime and evening event in memory of our daughter Rebecca, who sadly collapsed and died from an undetected heart condition. It’s 9 years since our world was turned upside down and we received that awful phone call telling us that Rebecca had collapsed at a friend’s birthday party at our local football club. What we witnessed that night was horrendous – our darling 25-year-old daughter was on the cloakroom floor, the paramedics were working on her and we were told that we would have to get to the hospital ASAP.
“It was in the early hours of the morning on November 14th when the doctors stopped working on her. She had died at that time and all that happened haunts us and will never go away. It was horrendous. We were helped by CRY over the months to come and could not believe that there were heart conditions that show no signs or symptoms and so many youngsters were losing their lives just as our daughter had. We decided to start raising awareness and funds to assist CRY to help other families and prevent
them from having to go through the heartbreak and pain that we had losing Rebecca.
“Our event took place at the pub where Rebecca had spent many a fun night with her friends, and the owners were so kind to her and have supported us at other events for CRY. We held a daytime event for children with a bouncy castle, alpacas, miniature ponies, a clown workshop, cake stalls and held raffles. It was the hottest day of the year and everyone worked really hard setting the stalls up, it was brilliant. In the evening we had an adult event with a hog roast and a live band, and this was also a great success. We managed to raise over £4,000 to help CRY with research, which is amazing, with people making very generous donations selling cakes and donating raffle prizes.”
Julie Phillips.
• Gaye Pickford sent in £625 raised from an online raffle.
• Lynsey, Sarah, Suzanne, Samantha,
Matthew, Emma, Suzanne, Mark, Richard, Peter, Lucy, Jamie, Richard, Lyndell, Paul, Sean, Caroline, Ann Marie and Nichola took part in the Cardiff Half Marathon and raised £2,779.02.
• Gaye Pickford sent in £300 raised from collection pots and donations.
Collingwood College held a charity fashion show at Durham University and raised £8,600.
• Team Colvin ran 576km for CRY and raised £960.
• Stephen Pomfret took part in the Sail for Ally Clipper Round The World Yacht Race and raised £840 before the event’s postponement.
Stefanie Price organised the Olney Tennis Club charity tournament and raised £507.
Mr and Mrs Bircham donated £100.
Amit, Dav, Marie, George, Chetan, Paul, Nav, Saj, Michael, Reena, Chris and Ben took part in the Leicester Half Marathon and raised a total of £3,162.
Jayashree Ramesh donated £100 in memory of her son.
Kay Rawlinson sent in further donations of £2,582.81 towards holding a screening.
Team Banbury took part in the Two Castles 10km and raised £2,112.
James Holmes took part in the Marathon Des Sables and raised £2,471.08.
Rotary Club of Rotherham donated £550.
• Tanjinder Price donated £3,500.
• Apple Matching programme sent in £7,000 in respect of Tanny Price’s fundraising efforts.
Ian Doughty and Simon Hughes cycled from Land’s End to John O’Groats and raised a total of £2,899.
Richard and Toni Ross forwarded a donation of £4,000 from Roco Production Ltd, in memory of their son.
• £200 was donated anonymously, “in memory of a very fine young man.”
• Ian Longmuir sent in £100.
Daniel Wilson took part in the Great North Run and raised £482.83.
Kerrie Purr took part in the Stratford-Upon-Avon Marathon and raised £514.94.
• Sjoerd Schuyleman donated £100 in memory of his son.
• Andrew Edwards donated £500.
• Helen Davies sent in £100:
“We were delighted to be able to send a further £100 to CRY in memory of our dear son, Neil. CRY has given such a lot of support to us as a family, and to countless other families who have been shaken by the sudden and unexplained loss of a family member.
We are very conscious that CRY, as is true for so many other worthwhile charities, will have suffered from reduced funds due to the cancelation of so many fund raising events. Our small contribution acknowledges how we continue to keep Neil ‘alive in our memory.’ Helen and Peter Davies and family.”
Jacqui Kedward took part in a sponsored ride from Marteltwy and raised £2,434.
• Max Catto took part in the Great Scottish Run Half Marathon and raised £750.
• Sienna and Addison Cairns took part in a charity walk and raised £665.
• Jamie Dunn raised £310 in lieu of birthday gifts.
Laura Shenton took part in the Disneyland Paris 36k Challenge and raised £540.
Morag Sheridan sent in £390 raised through the Waitrose green token scheme.
• Peter and Sharon Shonfield donated £150.
• Peter, Sharon and Freda donated £100.
• Linda Millership took part in the Great North Run and raised £375.
• Kathie Rees took part in the Great North Run and raised £370.
• Dr Rakhi Mistra donated £100.
• Mina Goyal donated £200 in lieu of holding a cake sale.
• Sanjula Sharma donated £100.
• Dr Raman Chandel donated £100.
• J Coombe sent in £400.
• Ajay Sinha donated £100.
Louis Smith sent in £141 representing donations in lieu of floral tributes in memory of his mother.
• Sally Woods donated £100.
• Andrew Hunt sent in £6,659.87.
• Josh Smith took part in the Great North Run and raised £413.
• Mrs J Nicholson sent in £240 raised by D Baber’s Friendly Club and from Braving the Shave.
Marco Nardo raised £515 from a tandem skydive.
• Sue Fisher sent in £100.
• Sue Fisher sent in £100 following her husband, brother, daughter-in-law and nephew running 100k during April.
• The Mounbatton School donated £150 in lieu of sending Christmas cards in 2019.
• Carole and Norman Coward donated £100 in memory of their nephew.
• Christine Wakeling donated £100.
Paul Hughes held an open garden event and raised £741 through plant and coffee sales and £100 from John Hughes.
• AL Charles & Co donated £100.
• Athanassios Tolis donated £1,000.
Linda Stiller donated £300 in memory of her son.
Patricia Strange sent in £200 raised from birthday donations and the sale of a wheelchair.
Jack Tacey sent in £500 in memory of his father.
Shilla Baluka sent in donations totalling £1,158.80 raised through a football tournament in memory of her brother.
Scott Taylor took part in the Great Bristol Half Marathon and raised £1,180.75.
Annette Jones took part in the Woburn Abbey Triathlon and raised £635.
Warren Daly raised a further £700 through matched funding.
• DJ Thomas & Sons sent in £166.89 donated in lieu of floral tributes in memory of Michelle Powell.
• Bethany Smith and Susan Greening took part in the Cardiff Half Marathon and raised £943.
Caroline Revitt donated £100.
• Lucy Bodfield took part in a 10k Run and raised £110.
• Nicola Blake and the Royal Mail Team took part in a 10k walk/cycle and raised £535.
Cheryle Thompson sent in £125.
Chris and Wendy Thurlow donated £100 in memory of their sister-in-law, Marcelle.
• Sasha Elliott donated £200 raised by her father through decorating his house with Christmas lights.
• Jessica Cooper raised £640.32 from a 5k run.
Christopher’s wife, Lizzy, and his parents, Danny and Bernadette, sent in £1,095 representing donations received in lieu of floral tributes.
Vikki Frampton sent in £30 raised by her daughter Eloise through her Rainbows project, in memory of her uncle.
William Ransom, Victoria Richmond and team raised £490 from the Laughing Barrel Christmas Charity Walk.
• Della Tudisca took part in the London Marathon and raised £4,823.20.
• Spacecraft International donated £5,000.
• Karen Webb sent in £600 from donations received in lieu of floral tributes in memory of her mum/motherin-law, and nan, Joan Webb.
John Turnbull donated £100.
Mrs P Sturton sent in £450.16 representing donations received in lieu of floral tributes in memory of her mother.
Jonny Howden, Andy Holbrook and James Howden took part in the Do it for Daz Cyclathon and raised £3,055.
Ken Waight donated £1,005.
Aunty Paula, Uncle Steve, Harvey and Spencer sent £100.
• Raygar Architectural and Engineering Supplies sent in £110.
• Jess Curley raised £355 from dry January.
• Violet Thornhill, aged 8, donated £10 in memory of her cousin.
Mark Wibberley donated £200 to commemorate the 10 year anniversary of Emlyn’s passing.
Elizabeth Williams sent in £100.
Liam Plumridge organised an online quiz for family and friends and raised £1,367.35.
Mia Carey-Parsons sent in £1,100 raised from Seth’s Ball in memory of her friend.
Gemma Stanton sent in £165 raised at her son’s christening in memory of her father.
Sue and David took part in a Darlington to Middlesbrough - Teesside Walk and raised £480.
Paula Ankers took part in a Snowdonia charity walk and raised £150.76.
• Maninder Ahluwalia donated £100.
• Ahren Innovation Capital donated £1,500.
• Yousef Al-Asfour and Duncan Russell took part in the Amsterdam Marathon and raised £2,059.51.
• Simon Barton organised a weekly work lottery and raised £100.
• Richard Berry donated £114.42 in respect of concert tickets for symphony queen.
• The Brewin Dolphin Foundation donated £250.
• Jonathon Burt donated £485.11.
• Charlotte Carney organised a 2nd Anniversary Fundraiser Ball and raised a total of £6,082.50.
• Charles Stanley & Co Ltd donated £20,502.
• 7th Cheam Girl Guides raised £360 through their open evening.
• Christ Church Ramsbottom sent in £120.49 raised through their community café.
• Concise Technologies Ltd raised £186 through their charitable giving scheme.
• Rebecca Dark raised £165 ahead of a charity boxing match before the event’s cancellation.
• David and Merete organised a Danish breakfast and raised £1,837.50.
• Chris Davies sent in £1,048 raised by Gordon’s School.
• David Lloyd Cheshire Oaks raised £728.81.
• Simran Dhillon donated £100.
• Cornelis Doves sent in £110 raised at the Burton Pidsea Shoot.
• Robert Dowsett donated £100.
• Dunnhamby Ltd donated £350 in appreciation of a talk by CRY Representative Jeff Markham.
• Edinburgh Students ESCA raised £152.
• James Edmonds completed an Everest cycling challenge and raised £122.
• Bill Edwards donated £250.
• Mi Edwards donated £100.
• Stephanie Edwards raised £230 ahead of Jumping Off The Stratosphere before the event’s cancellation.
• EIG Ecclesiastical Charities Trust nominated CRY to receive £1,000 through their Movement for Good scheme.
• Emersons Green Running Club donated £912 following a talk by David and June Bolton.
• Enterprise Rent-A-Car UK Ltd donated £1,000.
• Andy Evans took part in a PWCB Boxing Event and raised £370.
• Anne Everett-Ogston walked 300km for CRY and raised £420.
• Claire Finn climbed Mount Kilimanjaro and raised £495.
• Forest School raised £600 through their Fusion show.
• Good Kids Mad City took part in a personal development week of fundraising and raised £325.
• Rob Griffiths organised the 350z/370z Wales Event and raised £555.
• GSA Social Committee took part in various charity fundraising throughout 2019 and raised £4,581.74.
• Teresa Hall donated £120.
• Alan Halsall donated £100.
• Charles Hammersley took part in the Kielder Marathon Weekend and raised £1,000.
• Mary Hargreaves donated £500.
• Neil Harrison sent in £130 from the Formby Junior Sports Club from their kitty.
• Havering Dolphins and Suki Chhokar took part in the Havering Dolphins Swimathon and raised a total of £1,480:
“On Saturday 7th December 2019, members of Havering Dolphins and their families made a big splash when they took part in a swimathon to raise money for Cardiac Risk
in the Young. What a fantastic job from the team and all that took part on the day.
“A total of 3,361 lengths, 84,025 metres, were swum in less than 3 hours, which is the equivalent of swimming the channel and back – just incredible! We had to drag the swimmers out of the pool at the end or they would have kept on swimming! Please continue to give generously for this amazing charity.” Katrina.
• Anna Haywood donated £250.
• Andrew Hitch climbed Mount Kilimanjaro and raised £425.
• Karl Irons sent in £423.50.
• Della Johnson took part in a social media ban and raised £256.
• Liz and Huw Johnson took part in the Cardiff Half Marathon and raised £245.49.
• Benji Jordan took part in the Blake Street Marathon Challenge and raised £165.
• Ed Knapp took part in a London Rally and raised £115.
• Alice Lamb took part in the Thames Meander Half Marathon 2019 and raised £854.22.
• Lancaster University Cycling Club took part in a 24 hour turbo ride and raised £710.16.
• Amy Lees and Laura Eaton took part in the London to Paris Cycle and raised £2,283.
• Emery Little organised a wine tasting event and raised £627.
• David Littler donated £100.
• Mohit Mair donated £100.
• Mr Mason sent in £250 in response to a moving presentation to the Hadleigh Choral Society about CRY.
• Christina May donated £100. CRY was nominated for the donation by Frank and Keith from Mr Brambles following work carried out for Christina.
• Jonathan Mayes took part in the London to Brighton Cycle and raised £1,410.
• Larry McFadyen organised Bethany’s Legacy Ice
Hockey Match and raised £320 in memory of Bethany.
• Susan Middlemas sent in £750 nominated by staff at HMRC Waterview Park.
• Mike and Emma raised £520.74 in lieu of wedding donations.
• Millie, Martha, Lisa, Stacey and Liz took part in the Eastnor Castle Mud Bath and raised £170:
“Gosh, what to say… It was a hard, muddy event. Millie’s first ever 10km and undoubtedly the hardest 10km I’ve ever done (bearing in mind I did the Loch Ness marathon last weekend!). For a 12-year-old to do, it was a phenomenal achievement. It rained most of the event, we had water up to waist height and it took just over 2 hours!” Lisa Medhurst.
• Ryan Morley raised £1,596 through an online streaming gaming event.
• Wendy Moss donated £100.
• Mount International United Services Ltd held various fundraising events including a mud run, cream teas and baking competitions and raised £1,877.41:
“This week MIUS are delighted to announce that a donation of £1,877.41 has been made to the Cardiac Risk in the Young charity, to support their work in being able to find new ways to tackle Brugada syndrome.
“This was a cause that was very close to home for the MIUS family, as Service Engineer Matt Harris and his partner, Rachel, went through an unimaginably tough time with their young daughter, Ellie, who was diagnosed with the rare heart disease Brugada syndrome when she was only a year old. After going into cardiac arrest, Ellie
• Andy Owen donated £260.
• Neerali Pattni took part in the Great North Run and raised £580.
• New England Biolabs donated £100.
• Quantum Tuning Netball Club raised £285.
• The Quartet Community sent in £250.
• The Reigate Grammar Swim Team took part in the Dorking Deepdene Swimarathon and raised £220.
• Lucy Routley raised £185 ahead of a charity boxing match before the event’s cancellation.
• David Shore took part in the Three Peaks Challenge and raised £545:
was airlifted to hospital where she was saved by the fast actions of the doctors.
“Ellie has been fitted with a mini defibrillator and is believed to be the youngest patent in the world with her condition. The defibrillator is there to combat her Brugada syndrome, a rare genetic illness that causes arrhythmia, disrupting the heart’s rhythm, which can lead to a cardiac arrest at any moment.
“At MIUS we wanted to help Ellie and everyone else suffering with this rare heart disease, so we took on various challenges and fundraising activities to help raise awareness!
“Everyone was keen to do their bit – some battled the elements in the Eastnor castle 10km mud run, while others went without alcohol for a full month! A few cake sales helped keep the office staff happy and also kept the total ticking over.
“We are so grateful for all the donations and support we received from all at MIUS and everybody else who has so generously donated.”
• Iain Murray cycled 500km in 24 hours and raised £1,256.33.
• Naxos Music UK donated £5,000.
• Marion Newman donated £100 in respect of Martin Shepherd’s 70th birthday.
• Oundle School donated £331.10.
“For my 40th birthday I decided to climb the highest mountain in England and Wales three times, back to back, for Cardiac Risk in the Young.
“I reached the summit on my third climb in just over 11 hours. It was
tough, especially the second climb for some reason, but I enjoyed it and had some great support from my family and friends, who helped me to raise over £1,000 for CRY.”
• Dr Nikhita Sinha donated £251.
• Staff and Partners at Myrus Smith sent in £300 raised from holding a raffle.
• Jac Shephard’s colleagues at Stephen Green and Associates donated £150 as a leaving gift, in memory of her son, Neil.
• Stockport Ukulele players raised £150 during 2019.
• Mark Stoneham donated £250.
• Stride Ltd donated £2,500 in support of George Ashby’s fundraising efforts.
• Sunnydown School took part in a remembrance charity bike ride and raised a further £375.
• Mark Sweeney forwarded a donation of £202.33 raised by the Special Operations Team of the Greater Manchester Police.
• Tamsin, Robert, Jill, Nicholas, Joanne, Darren, Bartholomew, Andrew and Marc took part in the Tonbridge Half Marathon and raised £1,185.
• Teddington Bowling Club donated £125.
• Tonbridge and Malling Borough Council sent in £750 (right).
• Charlotte Torr took part in the Great North Run and raised £1,305.
• William Torr took part in the Great North Run and raised £690.
• Town & Country Club, Cornwall donated £100 raised from raffles.
• University of Essex Students Union donated £160.80.
• Colleen Venter sent in £5,205.10 raised through Intrum UK choosing CRY as their charity of the year.
• Tim Ward took part in the Christmas eve boot camp and raised £911.
• Peter Watkins donated £100.
• Hains Watts (Bromley Health Partners) donated £175.
• Noah and Tobias Whitfield took part in the Mini Great North Run and raised £285.
• Anton Witchell-Chibber completed a Hitchhike to Morocco and raised £160.
• Joan and Ian Wright sent in £125 raised from the Chalet Bakery.
• The staff and pupils of Ysgol Bro Teifi school took part in a sponsored walk and raised £3,000.
• Janina Zimmerman donated £100.
• Rebecca Zouvani donated £500, and forwarded donations of £85 from Emma Turetta and £20 from Stephanie Holyoake raised through a pamper zoom party.
Between May and August CRY featured in 55 print articles, including 4 national articles and 5 magazine articles. CRY also featured in 57 online articles.
‘Team David’s lockdown 10k in memory of their loved one’
Observer Series
Gabbie Broadhurst has been supporting CRY since the sudden death of her son, David Green. David’s friends and family (Team David) have run the Bognor 10K since 2011 in his memory, and as the event was cancelled due to the COVID-19 pandemic, they completed 10K runs in their own local areas.
Published 28 May 2020
‘Deadly heart condition in young is going undetected’
Daily Express
This article looked at the impact of CRY’s screening events being cancelled due to COVID, with comments from CRY Chief Executive Dr Steven Cox and CRY Consultant Cardiologist Professor Sanjay Sharma.
Published 22 June 2020
‘Mark finishes runs for “amazing” friend’
Daily Express (Scotland)
Mark McGuire, 22, ran 30 marathons in 30 days in memory of his best friend Ben Forsyth, who died suddenly when he was just 20 years old, and raised over £20,000 for CRY.
Published 2 July 2020
‘High school starts fundraising challenge in memory of Kieran’
Ledbury Reporter, 8 June 2020
Kieran Joyce died suddenly in 2019, and the staff and students at his school, Weobley High School, organised a week-long sport-related challenge to raise money for CRY in his memory.
Read at www.ledburyreporter.co.uk/news/18503826.high-school-starts-fundraising-challenge-memory-kieran/
‘“We’ll think of our Jack as we walk for Cardiac Risk in the Young charity”’
Halstead Gazette, 23 June 2020
The family of Jack Atkinson have been supporting CRY since his sudden death in 2016. Jack’s uncle, Richard Baker, organised a socially distanced walk so they could still raise funds in Jack’s memory. Read at www.halsteadgazette.co.uk/news/north_essex_news/18533901.well-think-jack-walk-cardiac-riskyoung-charity/
‘Luke keeps the memory of his big brother alive by riding for charity’
News & Star, 23 August 2020
9-year-old Luke Barwick completed a 10K cycling challenge to raise funds for CRY in memory of his older brother, Liam Dodd.
Read at www.newsandstar.co.uk/news/18664886.keeping-memory-brother-alive-riding/
For links to online, press, television and radio coverage related to CRY and young sudden cardiac death visit www.c-r-y.org.uk/inthemedia
By fundraising for CRY you will be helping to:
• subsidise CRY’s national cardiac screening programme
• fund CRY’s bereavement support programme to provide counselling and support to affected families
• support research into young sudden cardiac death (YSCD)
• develop the myheart Network to support young people living with cardiac conditions
• provide all CRY literature and information free of charge
• develop the CRY Centre for Cardiac Pathology (CRY CCP), and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology
The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD.
Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, sponsor forms and other resources.
If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.
Visit www.c-r-y.org.uk/charityfundraising-challenge-events for more information or contact the CRY office for a fundraising ideas pack.
The urgency of CRY’s mission and the quality of our work has compelled many high-profile personalities to give their time to become CRY Patrons. For more information visit www.c-r-y.org.uk/about-us/patrons
Sir Ian Botham OBE Honorary President of CRY
“It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.”
Rob Andrew MBE
Clive Clarke
Evans
• John Barrowman MBE
• Jack Clifford
• Jeremy Bates
• James Cracknell OBE
• Baroness Ilora Finlay
Michael Hoey
KSG
• John Inverdale
• Rob Key
McDowell MBE
MBE
Scott
• Simon Halliday
• Tom James MBE
• Gary Longwell
• Lee Mears
• Ben Brown
• Nick Easter
There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we also accept credit/debit card donations over the phone.
For further information please call the CRY office on 01737 363222 or visit www.c-r-y.org.uk/donations
All your help is greatly appreciated.
1. CRY Update magazine
Postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Founder; supporters’ fundraising; articles about screening, myheart, research, pathology, raising awareness initiatives, massparticipation fundraising events; and much more.
2. CRY enewsletter
Monthly email newsletter; 3 emails per year with links to the online version of the Update magazine; plus occasional emails about major CRY events and initiatives.
• Pixie Lott
• Bill Neely
• Sir Steve Redgrave CBE
• Roger Taylor MBE
Townsend MBE
Walliams
•
• Jonny
• Kathryn Harries
• Pat Jennings
• Emily Maitlis
• Lawrence Okoye
• Vincent Regan
•
OBE
• Graeme
• Phil Packer
• Joe Root
• Professor Gaetano Thiene
• Andrew Triggs-Hodge MBE
• Alison Waters
• Matt Wells
• Andy
• Gregor
• Andrew Trimble
• David
• Sir Clive Woodward
OBE
If you would like to subscribe to – or unsubscribe from – either of these mailing lists, please let us know:
• Complete the online form; www.c-r-y.org.uk/subscribe
• Call the CRY office; 01737 363222
• Email the CRY office; cry@c-r-y.org.uk
When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD).
Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions.
These conditions include hypertrophic cardiomyopathy (HCM) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS).
CRY aims to reduce the frequency of YSCD through raising awareness amongst the general public and medical community, providing expert cardiac pathology, improving early diagnosis through screening, supporting young people diagnosed and funding research.
1 in 300 young people CRY tests will have a potentially lifethreatening heart condition.
CRY believes cardiac screening should be available to all young people aged between 14 and 35.
CRY also works to guide and support families and close friends affected by YSCD.
We provide information to explain what the coroner does, bereavement support, help with NHS referrals and advice on the procedures that usually follow a YSCD.
In 80% of cases of young sudden cardiac death there are no prior
We
symptoms of a heart defect.
CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge.
For detailed information about cardiac conditions and CRY’s range of literature visit www.c-r-y.org.uk/ medical-information
