CRY Update Magazine - Issue 40 by Cardiac Risk in the Young

Brochure Update Issue 40

Cardiac Risk in the Young CRY Patrons: John Inverdale Rob Andrew MBE, Jeremy Bates, Ian Botham OBE, Mark Cox MBE, Nick Gillingham MBE, Rob Jones MBE, Professor WJ McKenna, Sir Steve Redgrave CBE, Professor Michael Vincent.

CRY Unit 7 - Epsom Downs Metro Centre, Waterfield, Tadworth, Surrey KT20 5LR Tel: 01737 363 222 Fax: 01737 363 444 Web site: www.c-r-y.org.uk e-mail cry@c-r-y.org.uk

Contents

CRY Representatives 1 Meet Alastair Paterson 2-4 5 6

Newsletters and Reports Newsletter - Alison Cox the Chief Executive Steve`s Report Mat’s Report

My London Marathon My London Marathon by

8 9 10-

Kids for CRY by Julie Tanner Julie’s Interview with Wordsearch / Jokes Kids for CRY Fundraising

CRY Fundraising 21-26 28,29 30 34-39 In memory of 11 20 27 31 32 33 40 Raising Awareness 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 Bulletin Board 70 Back Cover ‘God’s Lent Child’

Many thanks to Tim Woolley at Press Craft, Lithographic Printers, for all all his advice and support in subsidising the printing of this update. With his help we have been able to reduce our printing costs while significantly improving the quality of the finished product. No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means, electronic, mechanical, photocopying, recording or otherwise without prior permission of the Editor. The Editor and Committee welcome letters but reserve the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of the Editor, or its Officers. Articles pertaining to health related topics are FOR INFORMATION ONLY. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered as an endorsement for said product or procedure.

Meet our Representatives: Our parliamentary representative Alastair paterson James was our first child and when we try to describe him now, he sounds typical of many young people: cheerful, positive, his greatest enjoyment in life was having fun with his friends. He got into quite a few scrapes. We were typical parents, concerned that his carefree disposition led him away from making the most of his potential. As one of his school friends put it, he was not exactly chained to his desk. He went to Bristol University and gained a Masters in Geology. Though he wasn't particularly partial to the academic side of university, like most students he more than made up for the slog with a hilarious social life. Towards the end of his time at Bristol he surprised us by announcing that Alastair & Stephanie with Douglas, Amanda & James he had applied to go into the RAF. One of our friends commented, "He's supposed to be interested in things in the ground, not things in the air!" When we look back on it though, it wasn't surprising: the toys, books and pictures he drew as a child show his imagination was engaged in this direction. We were pleased that James had such a clear idea of what he wanted to do. We were delighted when he was accepted for initial officer training, subject to a satisfactory outcome from cardiac investigations into his heart murmur. We were not worried about this. It had been twice investigated in his childhood and was felt to be insignificant. He was duly given a clean bill of health again. Now he changed. Showing self discipline previously quite alien to his character, he set about achieving the physical fitness he would need for his rigorous training. Luck seemed with him: he really wanted to fly fast jets and was accepted to train as a navigator. Turning up at the car park for the first time at RAF Cranwell, he had the good fortune to meet Claire, who was to become his girlfriend. His sense of humour and love of adventure stood him in good stead as physically, mentally and emotionally he and his fellow recruits were tested to their limits. We were proud parents when they ripped the white bands from their hats, signifying that they were now Officers of the RAF, and threw their hats in the air, at their graduation parade. James now started to train as a navigator, and we kept our fingers crossed for him in February, 2002, when he would be told the type of aircraft he would be operating. His cup ran over when it turned out to be fast jet, though he knew that at any time in his further training he could be "chopped" if he didn't come up to scratch. There was one particular module of the training that concerned him and he told us he would be happy when he had passed it. When he was told that he would have to retake this module, his attitude was surprisingly robust. He felt supported, he knew how to rectify his weaknesses and he seemed confident. We last spoke to him as he was heading for the bar, jubilant, after his successful retake. Two days later Claire phoned to say that James, who had been due to visit her at a neighbouring RAF base, had collapsed an hour previously whilst playing football. The local hospital refused to give her any information about his condition. He had, in fact, died almost instantly despite the valiant efforts of his friends, trained in resuscitation, to revive him. Three and a half years have elapsed since then, the world is a different place to us and we are different people. Like all of you who have been through this experience, there is hardly a moment of the day when our loved one isn't in our minds at one level or another. There is no longer that punch of terrified agony and disbelief when we think of James; in fact we are aware that he has returned to us in another way. He is still part of our family, we all think of his reactions, facetious remarks and comments, even his advice, about what is going on. We are almost always very happy as we think of him. We are most proud that he was a person without malice and a good friend. He wasn't given to analyzing life's traumas but, in his own way, would cheer us up when we were down. (When his sister was upset at splitting up with a boyfriend he marched her into the kitchen and pulled a large box of ice cream from the freezer with the order, "Now eat all of this!") Sometimes remembering is not enough, but we now expect the profound sadness that comes at anniversaries and Christmas and have found ways of coping. We will always be grateful for the privilege of having James in our lives for 24 years. We are blessed with 2 other children, Douglas and Amanda. Douglas has run the New York and London marathons to raise funds for CRY. Amanda , "Divvi McThickster" as James (affectionately!) called her, faced difficult memories on admission to Bristol University, shortly after James's death and is making a success of her life and studies. We are immensely proud of them both. From the moment James died we yearned to understand the mystery of his death, which we now understand, was probably from Long QT syndrome and to share our grief with others who had had the same experience. A ray of light, following his death, was when we discovered CRY. We have felt at times frustrated and inadequate in our inability to contribute much to CRY's objectives and to understand Long QT. It troubles us that since James was to undergo cardiac tests anyway and was moving into a career with conditions that could trigger an arrhythmia in those susceptible and where his own sudden death could endanger so many others, that additional testing could not have been included. Our greatest wish would be to identify a simpler means of diagnosing this and the other elusive conditions, that lead to sudden death in young people. Issue 40

Cardiac Risk in the Young

Issue 40 Newsletter by the Chief Executive

Cardiac Risk in the Young

Issue 40

Report from Mat Wilson CRY Screening Manager The CRY Centre for Sports Cardiology

Issue 40

Cardiac Risk in the Young

the bereavement support day 2005

Greeting Team

Display

Mary

Sanj Supporters

Greg Rainbow Club

Lunch Time

Bill

Supporters 4

Cardiac Risk in the Young

Elijah Issue 40

Report from

Website Report from Office Manager - Kerry Gray The CRY website continues to grow, and once again I have some new webpages to bring to your attention. First of all, the CRY homepage - www.c-r-y.org.uk - now has a facility that will enable you to set the CRY webpage as your own homepage. Just underneath the picture of Steven Redgrave you will see a button that lets you do this. The CRY homepage is also carrying a number of new and exciting articles. We are delighted to announce that former England rugby international Simon Halliday is organising a massive fundraising event for CRY in March 2006. You can read all about his event at www.c-r-y.org.uk/simon_halliday_bath_half_marathon.htm New member of staff Mark Fox will also be undertaking a big fundraising challenge for CRY in March 2006, as he heads out to the Sahara Desert for a 9-day sponsored trek. You can read more about his preparations for this event at www.c-r-y.org.uk/mark_fox_desert_trek_before.htm or www.justgiving.com/markfox Continuing the fundraising theme, CRY has broadened its relationship with the event organisers Skyline (who do all the administration for our parachute jumps, etc) and can now offer two new 'free' fundraising events - Peru Trek and Iceland Trek. You can read about these - and all CRY's other 'free' fundraising events - at www.c-r-y.org.uk/free_fundraising_events.htm As you probably know by now, young CRY supporter Julie Tanner has compiled a book of celebrities' favourite quotes, with proceeds from sales of the book going to CRY. You can read some background about the book, and find details about it at www.c-r-y.org.uk/julie_tanner_book.htm A new addition to the 'CRY in Parliament' section of the website, is that each member of CRY's APPG now has their own webpage, for recording their involvement with CRY. If you go to www.c-r-y.ork.uk/parliament.htm and scroll down the page, you will find all the APPG members listed on the right hand side of the page. If you click on a member's name, you will go to their personal CRY page. For example, Dari Taylor MP's page (www.c-r-y.org.uk/dari_taylor_MP.htm) is full of media articles and pictures - not surprising as she is the APPG Secretary and one of CRY's most vocal supporters in Westminster!

Surgery Supporters Club

CRY in Parliament Event write-ups

My stories

2005 London Marathon

10th Anniversary

If you would like an A4 or A3 copy of any of the pages in this update (printed in colour & laminated) please contact the office Issue 40

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Julieâ&#x20AC;&#x2122;s Interview with D M

Cardiac Risk in the Young

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The Theme for this Update i s , B o o k s ! WORDSEARCH Can you find these words?

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Author Authoress Literacy Classic Novel Fiction Library Publisher Read

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HOW TO BECOME A MILLIONAIRE by ROBIN BANKS

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TRY AND TRY AGAIN by PERCY VERE

THE HAUNTED HOUSE by HUGO FIRST

DIAL AGAIN by RON NUMBER

CHINESE GOLF by HOLIN WON

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Cardiac Risk in the Young

In memory of scott mccollin

In memory of Andrew Ball Pupils of Shire Oak School (A Science College) in Walsall, individually held fund raising activities and have donated £245.87 to CRY. Roy Ball was asked to the school to collect the donation, "the pupils found his talk extremely informative". Della Shipton Head of Year 8.

"I am pleased to say that our middle section have recently held another mufti day and have raised £339.97 for the Scott McCollin Memorial Fund, which I am delighted to enclose." Michelle Appleby Charity C0-ordinator.

In memory of jonathan casey "Please find enclosed a cheque for £90 donated in memory of my late son Jonathan David Casey, who died suddenly on November 14th 2003, aged 27 years.The cheque is donated by Holywell High School, where Jonathan attended between 1987 & 1994. The school have indicated that they will include Sudden Adult Death in the Health and Social Care lessons to raise awareness around pupils" Mrs. D. Blythin Mother of the late Jonathan Casey.

In memory of jamie Bucknell "Please find enclosed a cheque for £350. This money is part of the funds raised by the classmates of Jamie Bucknell who sadly died suddenly in 2001. They undertook a sponsored assault course and some of the money went towards a sculpture for Jamie - a permanent reminder at the school. These classmates are now about to embark upon university careers and working lives and I know that they are thinking very much of Jamie at this time. We respect the work you do enormously and hope that in some small way this cheque will be of help to you." Jane Collins (Teacher of English)

In memory of ben newton "I write enclosing a cheque for £851.58 in memory of Ben Newton. This money was raised following our second Memorial Football Match played on 13th February 2005. This year "Nick's team" (captained by Ben's brother) won which was a fair result as "Ben's team" won last year. I hope this sum can help make a difference." Jean Heading Chatteris Town Youth Football Club.

In memory of david eastly "Please find enclosed cheque for £750

Sudden Cardiac Death Syndrome, the patholo-

which we have received from our son's

gist said he had a channelopathy. We know

school The FitzWimarc School,

you will put this to good use. It would be truly

Rayleigh. The school had a charity

wonderful if a complete cure could be found.

week and have donated the money in

died on 30th September

The shock and pain left behind by the loved

memory of our son David Eastly. David

2004 he was just 18, from

ones is indescribable." Linda Eastly (Mrs)

In memory of robert poyser "Please accept this donation of £50 on behalf of Step By Step Dance Studio.The funds were raised from our first very successful Christmas show held at Areley Kings, Stourport over the weekend of 18/19th December. I was a fellow pupil and friend of Robert Poyser for many years and I am very pleased that I can help by donating money into such a caring and thoughtful charity." Claire Boulton - Dance Teacher.

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Issue 40

banners gate infants and nursery school The children of Banners Gate Infants and Nursery School, Sutton Coldfield collected money for CRY. They chose CRY because the mother of one of their pupils had a young relative who died recently with S.D.S. Each year the school holds a Harvest Festival Charity. The children decorated Harvest envelopes and put any spare money into them. The envelopes were then emptied and they were used to decorate the assembly hall. John and Ursula Bick kindly collected the cheque on behalf of CRY. They were invited to the morning assembly "Many of the colourful envelopes were still on display when we visited, we greatly admired the art-work and the effort that had gone into them. We truly enjoyed our morning at Banners Gate School" John and Ursula Bick. The event raised £250

st. john’s school "We are delighted to be able to send you a cheque in the sum of £157.50 as a donation. The children and families of St. John's School sponsored us to take part in the 40th Porthcawl Christmas Morning Swim. We braved the cold and duly took part. The children and their families have been very generous and we were very grateful that the soaking was worth it!. Please accept the donation with the best wishes of the school, the pupils and their families" Mrs. A Rogers & Mrs. H. Evans (swimmers)

great marlow school "Please find enclosed a cheque for £300, a

kings house school The pupils, staff and friends of King's House

donation from the students of Great

School Junior Department, Richmond,

Marlow School after a fundraising event

Surrey have raised an amazing £2000 at

was held within the school". B Smith (Mrs)

stokes school "Each year at Stokes School we hold a party for the local Senior Citizens and, as a thank you, they make a collection which they donate to the school to use as we wish. We like to give this money to a charity and, as CRY is our designated charity this year, we are pleased to enclose a cheque for £56" G. Smolinski Interim Head Teacher.

green st’ Green Primary School

their Christmas Fair.

in memory of james millard The West Sussex Youth Music Awards was held on 13th March at Bognor Regis. Each year they sponsor a different charity and this year they chose to sponsor CRY in memory of James Millard who died suddenly in his sleep. The event raised a total of £390.50

st margaret’s school St. Margaret's School in Hampstead, London have raised £1,300 at their Summer Fair, CRY was suggested to them by Marlene Ziu.

"I am writing to you on behalf of Green Street Green Primary School & Home Association. Our School holds three non-uniform days a year to raise money for charities chosen by parents, staff or pupils. One of the parents, Nichola Parker, suggested your charity as a deserving recipient of our fundraising having received help and support from your organisation following the death of her brother. I am therefore delighted to enclose a cheque for £217 on behalf of the children, parents and staff of our school." Janet Young Honorary Treasurer. Issue 40

Cardiac Risk in the Young

In memory of Mandi blake Pennyman Primary School held an end of term sports day and sold drinks, tea, coffee crisps etc. and raised £200 for CRY. Mandi Blake's son Luke was presented with a cheque at the last assembly.

leysland high school Leysland High School in Countesthorpe, Leicester have held a Charities Afternoon, the money they raised was divided between two charities, CRY receiving £872.06.

In memory of ian bowen "Please find enclosed a cheque for £100 for Ian’s memorial fund. It is from Amy Posthill aged 10 from St. Cuthberts R.C. School. Amy held a Tombola Stall at school for CRY in her last week at primary school. Amy's dad works with Kenny and has done fundrais-

ing himself for us. Amy did not tell her parents what she was doing she just walked in then gave them a lot of silver and said this is for CRY! Her parents should be proud of her, we were delighted at this gesture." Maralyn and Kenny Bowen.

In memory of sebastian english "I am pleased to be able to enclose a cheque for the sum of £210 which the girls of Ashcombe House would like to donate to CRY. Our Charities prefect, Georgia Barson, particularly wished to support your charity and organized a quiz which took place at our Open Day" Ann Williams Ashcombe House Mistress. James, Jessica and Laura Firth had lots of fun selling CRY wrist bands at their school and raised £100. Aldwickbury School have sent a donation of £700.45p.which represents collections taken after their school Christmas Concerts. "The boys are aged 4 to 7 years and the theme of our production this year was Christmas Lights. We particularly chose your charity because Sebastian English was the nephew of one of our teachers here and we were all sadden by his sudden and untimely passing.I know that our donation will be put to good use" J.A. James Head of Pre-Prep.

In memory of shaun palmer "Keelie Palmer celebrated her 18th birthday on 29th May and in memory of her brother Shaun she organised and held her party on the 27th May which would have been Shaun's birthday. Keelie had the 'Missing You' song by Puff Daddy, that was played at Shaun's funeral, played as a tribute to him. Keelie's birthday raised £95.

In memory of Tabitha Shepland

In memory of james wilson

Kate Bradley and Russell House, students of

"We did a Health Week at school and

Wadebridge School in Cornwall have raised

as Mrs. A. Wilson is a volunteer worker

£50 in memory of Tabitha from the sale of greetings cards.

and a friend of our school and an active supporter of your charity, we wanted to raise some

queen elizabeth’s grammer school Pupils of years 10 and 11 at Queen Elizabeth's

funds in Jimmys memory." Wendy Young School Administrator. Usworth Colliery Primary School,

Grammer School, Faversham, Kent has raised £200 for CRY.

Washington, Tyne & Wear donated £220.89

st mary’s school, colchester "After an end of year charity ball between our school and St. Mary's School Colchester, we had agreed that any profit raised would be divided and donated to a charity that was relevant to our school. We had chosen CRY because one of our previous students was at risk and collapsed on the school playing fields; he was taken to hospital but sadly never recovered.The ball was a great success and we made a profit of £200, half of which was ours to donate to you, we hope you can put it to good use. A fantastic time was had by all." Asher Heigham - Joint Head Boy. 12 |

Cardiac Risk in the Young

Issue 40

in memory of sarah jane johnson

Sarah died at the age of 29 years on the 18th of August 2000, of an undetected heart condition called Arrhythmogenic Cardiomyopathy. To see her you'd have never thought there'd be anything wrong with her. She was so fit and active and went to keep fit at the gym and also did yoga. She loved life, and she lived life to the full. She achieved so much in her life. She gained 9 "O" levels, as well as "A" levels, and went on to Birmingham University. At the time of her death, she was an office manager for a company called P.D.C. Brush in Crewe. Sarah loved watching her beloved Arsenal Football team, and also drawing, sketching, and painting - and she had an "A" level in Art. She loved listening to many of her CDs and singing to them, and even did a few karaokes and won some prizes as well. She was our life, and our hearts broke into a thousand pieces the day she died. She had everything to live for, it seems so unfair she was taken from us. We love and miss her terribly. She collapsed at work just outside the main office on a Friday afternoon around 4.30pm. At 4.10pm I'd been talking to her on the phone and said me and Ian would see her in town on the Saturday morning. She said she was fine, and I went on my way to work for 5.30pm. Then my husband Harry received a call from her boss, who told him the best he could what had happened. Sarah's boss arranged a taxi to take Harry to Leighton Hospital in Crewe and he'd meet him at A & E. My husband phoned my supervisor, and she rushed me and Ian (Sarah's brother) there. The police had to go to break the news to my other son Lee and he was in a terrible state. When we arrived at the hospital, Harry was coming out of the Resuscitation Room with a nurse, and he said Sarah's heart had stopped and doctors and staff were trying to revive her. We just couldn't believe what was happening to our lovely daughter. The nurse took me to see her, while they were trying to get her back. It was like a bad dream and was I wondering when I was going to wake up - only to find nothing happening. The doctors tried for an hour, but it was all in vain. Even they were all upset, we were told, as you can imagine you would be. At her funeral, three managing directors came from Belgium to attend. Her boss said they'd never been to a funeral for someone so young who had worked for them. She was thought of so fondly by them, everybody who met her loved her - all her friends and colleagues came as well. The chapel was packed and some were outside too. My eldest son Lee who is 33 years old, ran the London Marathon in memory of her and raised ÂŁ2000 for CRY. We were so proud of him (his first ever run) and now my other son Ian, who is 18, is running the 2006 London Marathon (his first) for her too. I'm sure she is so proud of them. When we lost Sarah we, we just didn't lose a daughter and sister. We lost our best friend as well. But I know she is still with us, looking down on us, only a heart beat away and by our sides until "we all meet again", and we're still proud of her. CRY is a fantastic organisation and we are proud to belong to the charity. Sarah would be too. Issue 40

Cardiac Risk in the Young

Our Fundraisers

In memory of pamela Mackenzie "I have enclosed cheques for the sum of £910 as a donation for CRY, it is in memory of my daughter Pamela Mackenzie. All money raised was through family, friends and neighbours selling football cards and also handing in everything from brick-a-brac to clothes for a car boot sale we were doing.” I have spoken on the phone to a few members of the CRY staff but as yet have not given many details regarding my daughters death. Pamela Mackenzie was aged 23 at the time of her death on Sunday 24th August 2003, she left a little boy named Kyle who was then 2 years old. She was a very loving daughter to my husband and myself and a great and loving mum to Kyle and a loving sister to her sister Tracy and Brother in law Frankie. She was a very happy person who was liked by everyone and loved her job as a nursery nurse. She was also a very fit person and had no illness whatsoever. Pamela had been out with her boyfriend and stayed overnight at his house, we got a phone call at 4.05 on Sunday morning from her boyfriend saying he was waiting for an ambulance as Pamela was not right and he thought she had taken some kind of fit. We arrived at the hospital five minutes before the ambulance but Pamela had already passed away, although the doctors still tried to save her, but it was just too late. The cause of death was down as unascertained but when we got the post mortem report it was stated Cardiomyopathy, something we had never heard of. My doctors explained that she would not have felt a thing as it would have happened so quickly but also that it was normally genetic, so we have all been screened and were all clear although my wee grandson attends the hospital again this November, as with him being so young he will get screened every couple of years. As you can imagine it has been a terrible time for all the family and something that is always on our minds. We all miss her so much and hope that with all your good work something positive can be achieved. Thank you" Mrs. M. Mackenzie

In memory of malcolm jeffries A donation has been received for £110 from Mrs K Jeffries in memory of Malcolm Jeffries.

In memory of Dave Sanger "I enclose a donation of £72 in memory of my husband, Dave Sanger, who died in July 2001 of SADS. I held a 'Phoenix Trading' cards and gift wrap evening and a percentage of sales has been donated to ourselves." Pam Sanger.

In memory of Edith Duck A donation of £130 has been received by Mr Brian Duck in memory of his mother Mrs Edith Duck, for CRY.

In memory of geoffrey alan smith Mrs. Pam Smith of Blaby, Leicester has donated, in lieu of flowers, £897.64 in memory of her late husband, Mr. Geoffrey Alan Smith.

In memory of Marian Cox A donation of £165 has been received in lieu of flowers from the funeral service of Mrs. Marian Cox.

in memory of ian bowen "Please find enclosed cheque for £100.55 for Ian's memorial fund. It is from Norman Evans M.B.E. Norman is well known in the Town as he sits in his wheelchair on the High street every day playing his accordion. All money given to him he gives to charities. He has just been awarded an M.B.E. for all his charity work. I was pleased to think he thought of CRY for this money this time." Maralyn Bowen A donation of £125 has been received from Huntsman PU, in memory of Ian. 20

Cardiac Risk in the Young

Issue 40

Our Fundraisers

heart and music charity gala - devonport playhouse Heart and Music Charity Gala Performance was held at Devonport Playhouse on 30th June and 2nd July."I am pleased to tell you that the final total profit from the production was £5000, which we have split evenly between The Stroke Association and CRY. I am therefore thrilled to be able to send you a cheque for £2,500 as a donation towards your valuable work." Rob Tremaine, Producer.

rag committee "Enclosed is your donation (£1000) raised by the RAG Committee 2004-05. All our volunteers have worked extremely hard all year to be able to send you this cheque and we hope that it goes some way in helping you to achieve your goals. Whether you are selected as a nominated charity for next year or not, we would be delighted to hear from you in the future about any fundraising or volunteering projects you would like us to be involved in" James Regal RAG Co-ordinator. University of Exeter Guild of Students.

great north walk

coffee morning

"On Sunday 10th July I took part in the Great North Walk. I discovered CRY last year and decided to continue to sponsor the charity for this years walk. Please find enclosed a cheque for £200." Lynsey Blade.

Kathy Moyle held a coffee morning on 23rd July. Kathy gave out literature and sold CRY merchandise raising £142.50.

west highland way walk allders - portsmouth Allders of Portsmouth have sent a donation of £250. "As Allders has ceased trading, the charity fund has been wound up and CRY was chosen to receive one of the final donations." Alida Clifton Fundraising Co-ordinator and Treasurer.

Gary Barker from Dalry Ayrshire, completed the West Highland Way Walk (95 miles) from Milingavie (?) to Fortwilliam on the 18th May 2005.and raised £162 for CRY.

500m row and cycle

coast to coast bike ride

Kyle Hanson has carried out a 500 mile row

"I enclose a cheque for £200 for your charity.The money was raised with sponsorship when I took part in the 150 mile coast to coast bike ride. Money came from friends, family and staff at Wearside Magistrates Court." L. Hodgkinson.

and a 500 mile cycle and raised £100 for CRY.

david cobley "I accepted a cheque on behalf of CRY from my cousin David Cobley who wishes it to be donated to the CRY charity. The enclosed cheque is for £1000." Vera Looker

in memory of alfred barnes

flower wrapping "A number of colleagues have put forward CRY for a flower wrapping collection Valentines 2005. I am pleased to enclose a cheque for the sum of £200. Congratulations" Gary EardleyStore Manager.

accenture Accenture (UK) Ltd. have donated £100 to CRY.

Mr. Nigel Barnes has donated £155 in lieu of floral tributes at the

in memory of vera camilla greenwood

funeral service of his late father Mr. Alfred Barnes.

llyods tsb Lloyds TSB at Douglas Isle of Man have raised £595.60 over the past two months from Dress Down Days "and hope this will be of some benefit to the charity". Erin Guy.

Mrs. Vera Camilla Greenwood deceased directed that "after the special bequests, any money that I leave to be given to any worthy charity". On the instructions of the executor, £4000 was donated to CRY.

liverpool university trampolining club Mary Peters and friends at the Liverpool University Trampolining Club held a "sponsored Bounce Event" and raised £412.50 for CRY. Issue 40

Cardiac Risk in the Young

Our Fundraisers

in memory of david elliott Mrs Eileen Elliot has sent in a cheque for £280 in memory of her stepson David Elliot. This was raised from a lucky dip raffle, organised at Christmas, with the help of colleagues from the Education Department of County Hall, Durham.

In memory of jane maxine coe "Congratulations on achieving the Framework Chapter 8 on Arrhythmias and Sudden Cardiac Death. I enclose a cheque for £100 in memory of my daughter Jane Maxine Coe, who died in 1997, cause of death unascertained.Good luck with future projects." Ann Armstrong

In memory of Helen Luke "During 2004 the players at Calderfields Golf Club, Walsall have unwillingly, unwittingly or unskilfully played into the Lady Captain's Charity Bunker and the donations given for this misdemeanour have amounted to £267.90.

In memory of james Dougherty Mr. Richard Dougherty approached NTL regarding their community award. "I'm delighted to tell you that your application for a NTL community award has been

In memory of robert Poyser

successful. I'm a firm believer in supporting

"Please find enclosed cheque for £100 for the general fund, in memory of Robert. It's the proceeds from two car boot sales I did late last year" Diane Tolley. "Please find enclosed cheque for £138 being the proceeds from 2 Car Boot Sales and small change collection from Robert's sister Angelas" Diane Tolley (Robert's Mom)

associates who are giving something back to their local community or charitable causes. I'd like to thank you personally for what you have done to date in support of Cardiac Risk in the Young" Virginia Budd On behalf of the Community Fund Panel NTL. NTL donated £250.

In memory of Kay Wilson "After a very successful memorial tribute to our late daughter Kay we are pleased to enclose two donation cheques for your funds for the sum of £1359.56. The Whiteman Dance Academy held a dance tribute to Kay 'REFLECTIONS' , in association with the City Technology College Kingshurst, where Kay studied. "After a very successful memorial tribute to our late daughter Kay with a 7-a-side football competition on the 28th May 2005, we are pleased to enclose donation cheques for your funds for the sum of £2092.75p. The money was raised by a Raffle, Disco, Donation Cheques and Food Sales, and was attended by Mr. & Mrs. Bick of Tamworth on the evening disco. The Club Hosting the event was "Dot Hayward - The Pavillions Sporting Club - Kingshurst, Birmingham." Jacqueline and Kelly Wilson. A further £26 has been received from the sale of pens at the event.

In memory of nicholas thorne Mr Ventress has sent a donation of £100 for the Nicholas Thorne Memorial Fund. "Thanks….On Saturday 21st May St. Josephs Association held their Annual Summer Fete, and it was a great success. There were all sorts of stalls and even a football tournament for the children in Key Stage Two. All the proceeds from the toy stall went to the charity CRY (Cardiac Risk in the Young) because a former pupil Nicholas Thorne died of an electrical instability of the heart. His brother Dean also attended St. Joseph's he now attends St. Bede's. Nicholas' sisters Charlotte and Amy are at St. Joseph's now with Charlotte in year 6 and Amy in Reception. The parents Eunice and Robert are very grateful to the association for a cheque of £250 pounds." 22

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Our Fundraisers

In memory of aaron lundy A cheque for £2,100 was given to Alison, by John Lundy, at the Ireland Postacard Launch, representing money raised at various fund raising events. John Lundy's fund raising for 2004 has raised £8945. We have received £4046 from John Lundy for Aaron Lundy's memorial fund. This was raised by various fund raising events.

In memory of andrew blow

In memory of huey lewis

Andrew’s Aunty and Uncle, Cecilia and Shaun O'Connor have donated £100 in lieu of flowers for the anniversary of Andrew on the 10th May.

In memory of ian Willoughby "Please find enclosed a large cheque for £4,300, because my committee has ended. I will of course carry on raising awareness for CRY and do what I can on my own! It is a shame that the committee had to end." Kay Linnington.

In memory of john marshall "Please find enclosed a cheque in the sum of £420 for the John Marshall Memorial Fund resulting from the Durley Hall staff's fundraising efforts last year." Joan Mitchell.

"Please find enclosed a donation of £250 from the friends of the late Huey Lewis" Paul Mansbridge.

In memory of mike scott Cheques have been sent in via Marjorie Scott, totalling £113, for the Mike Scott Memorial Fund. They came from Carol Gamble (£20) and the North York Moors National Park (£93) respectively.

In memory of james markham "I am pleased to say that the committee has agreed a donation of £250 in support of fundraising activities for this worthwhile charity" Don Evetts Community Service Chairman. Lions Club of Maidenhead.

In memory of ben newton "I enclose £548, this money has been raised by one of Ben's friends, James Salter-Boyden of Doddington participating in a recent parachute jump for your Charity in Ben's memory. Unfortunately James has been unable to take part in two Memorial Football Matches so I feel that this is his way of assisting your Charity in memory of Ben" Jean Heading, Chatteris Town Youth Football Club.

In memory of Jonathan picker

In memory of kevin sayer

Fundraising has already started with Jonathan’s friends. They have been so supportive to the family and have sought raise money and awareness about CRY. Jonathan’s friends organised a memorial football match and family fun-day back at the beginning of June 2005 and raised £2400.00. The team have also put in place a charity shield for both football and golf in memory of Jonathan, and we hope to run the events year on year. I personally would like to thank each and every one of the boys for their support, especially Andy, Phil and Mike who helped organise the match and family fun day. I would also like thank everyone that donated prizes and bought raffle tickets in order to make the fundraising a success.

A donation of £1,744 has been received from Eve Sayer,

Issue 40

this represents half the money raised at a refreshment area at The Bergh Apton 2005 Sculpture Trail.

In memory of levon morland Jeff Morland and his 'team' in the North have been fund raising again and have made a donation of £30,000. Cardiac Risk in the Young

Our Fundraisers

In memory of andy gard A donation of £275.50 has been received from the St. James Surgery, Essex, which comes from the proceeds of their Christmas raffle. Mrs. S Vousden of Little Clacton has held a jumble sale and raised £100. We have received, via Caroline Gard, a cheque for £2000 representing fundraising carried out throughout last year by the Chelmsford Ladies Golf Committee. Caroline Gard has forwarded £700 raised from the July ECG testing in Colchester.

In memory of lewis marsh

In memory of William Whittaker A donation has been received for £153.32 from Mason

Gill Weston has sent in a cheque for £2,000. This money was raised at the

& Stokes Funeral Services, this being donations received

Sandhurst Boys Football Club in at Mr Whittaker's funeral service.

memory of Lewis Marsh.

In memory of geoffrey Jack Ladley "Please find enclosed the sum of £525. Our seven year old grandson, Jack Ladley, died suddenly while on holiday in Spain nearly three years ago. His totally unexpected death devastated the family. The diagnosis was "Heart Attack". I recently celebrated my sixtieth birthday so I asked for donation to CRY instead of presents. I am delighted to send you these cheques to further your work into this very distressing problem." Thia M Hughes

in memory of gary burke A charity night was held at Stanley Social Club in Bootle. This included raffles and auctioning a signed Everton Shirt. £600 was raised and John and Theresa Burke have donated this in memory of their son Gary. Ruth Lowe represented CRY and collected the cheque at the Aintree Public House Bootle in June. "We are a Sunday Football League based in Liverpool and each season we play a charity match. Previously known as the Formers Shield the trophy was renamed the Robbie Murphy Memorial Trophy in memory of a player who sadly died after one of our league games in 2002. We take a collection at the match and at our league meeting and Robbies family asked us to donate to Shelter the following year. Last year we donated to Alder Hey Childrens Hospital. In January 2005 Gary Burke from Wood Street F.C. unfortunately died during a training session. Normally the charity match is between the league winners and the McDonnell Cup winners (incidentally renamed after Peter McDonnel killed at Hillsborough 15/4/89) but as the cup winners had left the league we invited Wood Street to take their place. The match officials very kindly waived their fees which were then included in the collection which was also swelled by raffling one and auctioning another of the match balls from the finals. Wood Street F.C. on behalf of The Burke Family, have asked us to donate the £275 cheque to your organisation. We hope it will come in useful to further your work to help Cardiac Risk in The Young.

in memory of andrew mark croxson "Please find enclosed a cheque for £350, which is a donation from my company to CRY. We obtained this money from the saving we made last Christmas by not sending out Christmas cards to our customers. CRY is very special to myself because my own son Andrew Mark Croxson died at the age of 24 on April 10th 1999 due to sudden adult death syndrome. Andrew it seems was a classic case being a sports person and very healthy and had in fact been playing football the day of his death. My youngest son Timothy does have a heart defect but is under the hospital and it appears he will now lead a normal life, he is now 22. My other son aged 27 appears to be perfectly healthy. We hope this donation will help in some small way in the work you do in making people aware of this disease. " James Croxson, William Croxson & Son Ltd. 24

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Our Fundraisers

In memory of Ben thomas carter "Please find enclosed cheques, which have been donated to CRY in memory of my dear son Ben Thomas, who was so cruelly taken away from us on March 24th this year. Ben died suddenly whilst football training at the very young age of 14. Following a post mortem, Ben was diagnosed with a congenital coronary artery anomaly, which had gone undetected since birth, despite him undergoing numerous tests throughout his short life at various hospitals. Ben's school have been extremely supportive and have held various fund raising events in honour and memory of Ben. I lost my dad twelve years ago and my mum sixteen months ago, but as you've probably heard time and time again, nothing, but nothing can prepare you for the loss of your dearly loved child. Many thanks for your kind support" Joanne Carter A donation of £898 was made. Quotes from 'A TRIBUTE TO BEN CARTER’ '"I remember Ben as a young boy who liked to live life to the full. Ben was a valued member of the tutor group; he had a good circle of friends that he could rely on and just as important - who could rely on him. A great team player and leader. He stood as form rep in years 7 and 8.” “I watched Ben grow in confidence and maturity over the 2½ years , what a great transformation! He was an absolute delight to have in the tutor group, greatly loved and sadly missed by all" Gen Mitchell - Ben's form Tutor and Subject Leader of Languages. "What can you say about Ben? He was a star, a talented young man, a privilege to teach and a friend. He was a born leader who oozed confidence. Ben viewed failure as a stepping stone to improve himself.” "Whilst in France I looked up at the night sky and saw him. He was the brightest star in the sky because he had an infectious enthusiasm for life that rubbed off many other students. If you had 1,000 oranges and took the zest, you would still be nowhere near the zest for life and sport that Ben had." Chris Steele - Subject Leader of PE. "Ben was our goal keeping hero and he was fearless. During an end of season treat last year the team went to the Crocky Trail. While there Ben decided to leap the brook at its widest point and to the amazement of the large crowd who had gathered to see him "fall in", he made it with ease. Where Ben led the others tried to follow, most without success.” "Ben was not only her son but also a friend to her and not many mums are in a position to say that about their 14 year old son. He was a precious and loving son, brother, grandson, nephew, great nephew, cousin and friend to many. He was a fun loving young man who loved life, had a great sense of humour, with a passion for sport and who was an inspiration to others" Ben's Mum (Joanne Carter).

In memory of Andrew Parr Gemma Abinett, lost her fiancé Andrew Parr to a sudden heart attack. She gave an interview about what happened to Andrew to The National Magazine Co. Ltd. They said they would like to donate some money to the cause and Gemma asked that it be for Andrew's memorial fund. The amount donated was £100. A donation of £45 has been received from the Harris School PTA Brass Band for the Andrew Parr Memorial Fund. Ruthe Lowe has held a car boot sale and raised £100 Mr. & Mrs. Hamm from Preston, who are friends of Ruth Lowe, recently celebrated their Golden Wedding Anniversary and asked for donation instead of presents. CRY was one of their chosen charities Issue 40

Cardiac Risk in the Young

Our Fundraisers

In memory of james jackson Julia Morgan, James's Grandmother and Joanne Morgan, James's Aunty have sent in a donation of £815. The money was raised during an evening of Sacred and Christmas Song which they organised and was held in December at Christ Church, London SE9. Barclays have donated £407.50 through their matched funding scheme. James's mother, Teresa Jackson, has donated a further £2000

In memory of david bick "Once again our friend Alan Bain the Proprietor of the "Sandyback Inn" Tamworth held a Mr. Strongman competition for CRY and raised the sum of £253.80. John and I attended we helped out with the hot-dogs and beefburgers; collected empty glasses and passed the collecting boxes around. It was a great day, despite a little rain and everyone cheered the competitors along with great gusto." John and Ursula Bick

In memory of daniel edward hall "Please accept the following donation in memory of Daniel Edward Hall (17th March 1982 - 14th May 2000). Daniel was parted from his immediate family of Suzanne, Tony, Sarah and Rachel so suddenly and sadly in Bideford, Devon. Daniel's Family, Grandparents, Godparents, Uncles, Aunts, and Cousins all still miss him, and it is hoped this donation will help others in his name. QA (IT Services Limited) for whom I work hold a 'charity-dress-down' day each month, and ask for worthy nominations. I proposed CRY as the charity to benefit from the collection on 1st April. The donations were generously made by my friends, colleagues and staff in QA.

In memory of Simon Pangborn Samantha Pangborn has sent in a further donation of £1,000 in memory of her beloved husband, Simon, who died unexpectedly in July 2004. "It gives me great pleasure to enclose a cheque for £577.91 to add to Simon's memorial fund. On Saturday 9th April, we held a quiz night to raise funds for "Simons Arrows" - our under 11's football team, and CRY. We usually have 2-3 of these a year and always have a fantastic evening - lots of laughter and healthy competition! - With the added bonus of raising money for two causes very close to our hearts. Simon always enjoyed being with friends, and would be thrilled, I know, that his memory lives on in this way." Samantha Pangborn.

in memory of karl ashcroft "At Persimmon Homes (Essex) we have decided to channel all our fundraising efforts into raising money for your charity, CRY. This is in memory of Karl Ashcroft, a young man from Colchester who worked in the construction industry. I have pleasure in enclosing £760 which resulted from a staff auction of used white goods." Linda McKenzie,

in memory of cecilia barriga "My name is Karin Herslow, and I am living in Sweden. I am writing this because a young relative of mine, Cecilia Barriga, tragically died of an undiscovered heart disease a month ago. There are some of us, her relations in Sweden, that would like to donate to your organisation. It is some sort of comfort that there is an organisation like CRY, and I appreciate very much the help I am given by you." Karin Herslow. A donation of £200 was received.

in memory of liam daniel beeson Miss S.L. Kirby of Leicester has donated £210 in lieu of floral tributes, at the funeral of her son, and in memory of, Liam Daniel Beeson 26

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our fundraisers

In memory of laura moss "Please accept the enclosed cheque for £366 this money has been raised by the members of St. Mellons Golf Club. The Captain John Davies has requested that this money be donated to the CRY charity which John has a personal interest in, having lost his grand daughter a number of years ago whilst training for inclusion in the British Olympic Swimming Team" John Critchley

In memory of max smith

In memory of matthew hill

Steven Smith held a 'HOD-ATHON' on 22nd December

"Thanks for all the information you sent me regarding cardiac failure in the young after the recent loss of our 15 year old son Matthew. It's such a shock that he just went to football practice as he did every week and 1 hour later he was dead. We would like to donate the £420 collected in lieu of flowers to your charity" Ian & Debbie Hill.

in memory of his son Max. We walked from his home, to his place of work with a fully loaded hod of bricks. His sponsorship raised £1346.64, including £218.64 donated via his web page "Little Star'.

In memory of klara tirimo Mrs. Jane Tirimo has donated £100 in memory of her daughter Klara.

In memory of Grant Mills "Please find enclosed a cheque for the sum of £832.87. This money was raised at the annual Waltham Forest Youth League charity event. Our son Grant Mills, played for Crownfield F.C who are a member of the Waltham Forest Youth League, Grant played for Crownfield from the age of 8 - 15 years old. Sadly Grant's loss had a devastating effect on all the members and players and it was therefore decided that this would be a fitting tribute to the memory of Grant." Mr & Mrs T Mills.

In memory of dominic O'Loughlin Clifton Rangers Youth Football Club and held a 6-aside football tournament in memory of Dominic, and raised £1000.

In memory of adrian regan "Please find enclosed a cheque for £300 raised in memory of our son Adrian by the Landlord of The Ivy House Inn, Halifax, Mr. Peter McNamara. Adrian died suddenly on April 21st 2003 aged 34. Adrian is sadly missed by all." Chris Regan.

In memory of timothy read Mrs. J. Read has donated a further £200 in memory of her son Timothy.

In memory of benni d’arcy esposito "I enclose a cheque for £300 donated by friends and family of Benni D'Arcy Esposito, who died peacefully in his sleep at the age of 33 years from Wolfe-Parkinson-White Syndrome on 4th January 2005. Benni suffered from this illness from birth but led a full and happy life until his sudden death. He was an artist and lecturer at the Duncan of Jordanstone College of Art in Dundee." Elizabeth D'Arcy.

In memory of ben thorne A further £344.50 has been raised by Pete and Barbara Jackson and Friends for the SRC Ben Thorn Cycleothon 6, making a running total of £8614.65. "My niece Katie ran the London Marathon this year in memory of her cousins Ben and Bary (my sons) and her uncle Tony (my husband). She raised £1222 which together we decided to share between CRY and St. Barnabas, our local hospice who cared for Gary so well. Please find enclosed cheques for £616 in memory of Ben Thorn." Veronica Thorn. Katie has sent a further £65 from sponsorship. Issue 40

Cardiac Risk in the Young

My London Marathon In memory of jane allen by Philip Allen Sunday 17th April 2005 was at once one of the greatest and one of the toughest days of my life. A year of committing to it; six months of training (starting another month on top of that with my caffeine and alcohol ban!); all the fundraising and publicity; standing in Greenwich Park an hour before the start and knowing our bid was just then being shown on national TV; the thrill of 26 solid miles of very vocal support; all the races that had led up to this and the injuries that came with them (including shin splints that looked to have come too late to heal in time); the knowledge that thousands of pounds rested on running, walking, hobbling or crawling to that line halfway down The Mall; my first London Marathon was always going to be a day I could never forget. The biggest reason the events of that day would be burnt on my mind, was the reason I was there in the first place, and the one thing I had thought about every day for a year and a half, sometimes constantly and always last thing before I tried to go to sleep at night. My sister Jane had gone to bed one Friday evening and never woken up the following morning. Only 35 and apparently very fit and healthy, Jane had simply died in her sleep. It made no sense, and still, 18 months on, we do not yet know for sure exactly what happened. As a family, we now know a lot about these conditions, but that Saturday morning in November 2003, nothing had prepared us for what was happening. Everyone experienced this differently: hearing the worrying news that then became devastating. For me, I heard the phone ringing at 7.30am and couldn’t work out why anyone would call at that time. All I could think was that the rugby World Cup quarter-final had just started and perhaps the New Zealand boyfriend of my sister Katie, who had come up to stay with us, was calling because they’d scored a great try against South Africa. I wouldn’t mind getting out of bed if it really was a good try. Instead, it was my mum and she sounded dazed. She said that Jane was unconscious. Knowing that Jane was so fit, I tried to reassure her it would be alright and wondered if I could go and help her husband Edwin look after the children while she was being treated. When I called Edwin, he said she was not breathing and had no pulse. Katie and I were out the door a minute later. We had not yet left Cambridge when my wife called to tell me Jane had died It took a long time to get close to some kind of explanation as to why she had suddenly died, as each test ruled out another possibility but shed no light on the probable cause. We began to hear about Sudden Death Syndrome, but with the post mortem giving no real cause and the coroner inexcusably offering an impossible trigger for her sudden death, it would take months of testing of all the closest family members to point towards a cardiomyopathy as the reason for her sudden death. As we found out more, her years of occasional blackouts fitted a pattern. While we were finding out all about Sudden Death Syndrome, we soon came across the charity Cardiac Risk in the Young, who provided a lot of help and support to us as a family, particularly at the bereavement support day in London, where we met other families who knew how we felt better than anyone else could. By this time, Katie had found out that CRY had a team of runners with guaranteed entry to the London Marathon if they pledged to raise enough money. Once she decided to enter, I knew I had to do it too, to honour Jane and help raise money and awareness for CRY, to try to prevent other families from going through what we had. Unlike Katie, who was five years younger and a lot fitter, I had a lot of work to do to get in shape. I started with a selfimposed alcohol and caffeine ban and a concerted effort to cycle everywhere. I found a 24-week training plan for beginners, starting slowly and soon picked up the pace until we ran a 10K race on Boxing Day. With the first anniversary of Jane’s death coming up at the beginning of November, October had been a tough month. But as November started and so did the training, it became a focus for my grief and gave me time to think while running. By trying to channel my attention into something that could help others, it was a means of coping. I started fundraising early on, as I was determined to get the maximum out of this effort for the charity. My first tip to fundraisers, would be to make sure rich and generous friends start off any new sponsor form - particularly if they are competitive enough to try to outbid each other. I had raised over £300 in my first afternoon. I could then see people given that same sponsor form later who maybe thought they might give £5 but, on seeing amounts over £50, decided to stretch to £20. Also, make sure you start any new group of potential donors with the one you expect to be the most generous. Everyone else will match their total. I also knew that I wanted to get the maximum exposure possible, partly to attract even more sponsors but also to take the opportunity to tell as many people as I could about these heart conditions, to try to prevent further tragedies. I wrote to various local media, press and television, giving all the relevant information, and highlighting possible angles to the story. By an extraordinary coincidence, my wife was expecting our second child on the day of the London Marathon itself. This gave a positive angle to the story and a way into the much more serious issues. Just before Christmas, our local ITV channel, Anglia, got in touch to ask if they could do the story. They filmed and interviewed

Katie, Edwin and me and the story, a full three-minute feature, went out on every news bulletin one day in January. This then led to other things. The next day at my son’s nursery (kidsunlimited in Fulbourn), a lot of the staff said they had seen the TV news and wanted to help. They soon thought of putting on a mini marathon for toddlers and preschoolers at the nursery to raise awareness, and hopefully money, with the parents. This would later lead to even bigger things. Meanwhile, the training was intensifying, with some longer runs in January up to 16 miles. It was about then that I heard from CRY about the chance to run the marathon in their large foam heart costumes. As I had decided to try to get maximum exposure, I had to do this, even if it meant an added burden for my first marathon. Steve Cox at CRY assured me I could give the costume a try in training and not be committed to doing the marathon in it if it was all too much. He suggested I try runs at 5am to avoid being seen. I opted for the opposite, picking busy times to be seen by as many people as possible. I knew exactly why I was running in it and wanted as many people to spot me as possible. I also put my fundraising web address in large letters on the front and back, to publicise it. My first race in the heart costume was the Sussex Beacon Half Marathon in Brighton in February. I ran with Katie and we stuck together all the way (except around the 10-mile mark into the wind on the cliff tops, where the heart caught the wind like an airbrake and trying to sprint got me barely above walking pace). We crossed the line together in 1 hour 56 minutes, which surprised us both. Determined as ever to publicise our run, I had sought out the local radio station that was covering the race and my interview was on Juice FM the next day. Katie had also got in touch with her local paper, the Daily Echo in Bournemouth, and had a full page spread, including her web address, which led to some large donations. Running in the costume was not too bad. It was awkward at first because your arms are pushed out at funny angles by the foam, making it hard to swing them as you normally do when running, but I soon developed an upper-body waddle that did the trick. I was sure the marathon would be no problem. In fact, it took some of the pressure off because if I was going slowly, I could blame the costume but if I was running without it, I would have felt the pressure to run faster than I could cope with. I wrote to lots of different companies to ask for sponsorship. Almost all wrote back to say they didn’t sponsor individuals but did already donate to chosen charities. One such letter though did bring a four-figure donation from a company that didn’t want to be named because they don’t normally do that. It was only a family link that persuaded them to find the funds on this occasion. By this time Katie and I had far exceeded our minimum pledge level and had thousands of pounds, and expectation, riding on us. That was when the long training miles and an excessively fast second half of the Flora London Half Marathon around Silverstone combined to give me severe shin splints. With only a month to go, I began intensive physiotherapy, with laser treatment, manipulation and ice baths three times a day to try to make sure I got to the start line. It was then that I began to realise just how much this whole process had focused my grief and how devastating it would be to have to pull out. One way or another I had to cover that distance on foot and complete the marathon for Jane. I had one last avenue to try to publicise our run. I knew that the BBC would feature stories on charity runners during their BBC1 coverage of the London Marathon on the day. I needed to get in touch with BBC Sport and eventually got through the switchboard to the production manager of BBC Grandstand. I told her my story, emphasizing the picture opportunity of the toddlers running the mini marathon and me in the heart costume with them. Before long, it was arranged that champion athlete Colin Jackson would come to Cambridge to film it and interview me. [Download clip] This gave it enormous clout and guaranteed the story was sure to be aired on the day. Colin was superb all day and great with the children. All I had to worry about now was the 26 miles ahead of me two days later. I won’t go into the race itself in too much detail. My experience of the day was probably much like many others, at least until the blistering heat made running in the costume even more of a challenge. My wife, watching at home and fortunately not giving birth (although I was on the mobile all the time to check), even managed to spot Katie and me filing through with thousands of others at the start, and the banner the family had made for us (right), which was in full view on the screen for ages. Katie ran with me for the first 10 miles but we then agreed she should not be held back and run at a comfortable pace for her. The spectators were great and, if ever you needed a lift, you just had to run along the side of the road having high-fives with the crowd. The one part of the race that I had expected to be emotionally tough was at mile 25 opposite the London Eye. When Jane died, she had been due to go to London that day with Edwin and go on it for the first time. Having worried what seeing this landmark on the day would do to me, it passed uneventfully as I was prepared for it. Then I turned into Parliament Square. Big Ben struck three. I had nearly finished the race that was the culmination of a year’s focus and six months of hard training, all of which had given me a channel for coping with Jane’s death. Now it was nearly over, the emotions hit me hard and I ran the last mile in uncontrollable floods of tears for my big sister. Two years older than me, she was the one I had known all my life and living without her now is so hard. The fact that I have now reached 35, the age at which she died, and, like her, have just had my second child in the spring makes this an emotionally tough time. I see all that she is missing out on. Katie and I both finished fine, slower than I would have wanted but I’ll see about that next time. This time was for Jane and finishing was the most important thing. In the end, the fundraising brought in lots of sponsorship. The mini marathon raised over £1,700. Between Katie and me, we jointly raised over £10,500. The most important thing was that we honoured Jane by doing it and it seemed fitting that we got to tell the whole country about Jane’s death and just how much she means to us. One of the hardest things about Sudden Death Syndrome, unlike many other conditions that cause an early death, is that we never got to tell her all this before she died, at least not in so many words. I hope that in spirit she knows this now.

Running for cry

fiona and john bowden - great manchester run "My daughter and I chose to run the Great Manchester Run in support of the charity CRY. It was the first time we both had done such an event and as such it was also a challenge. We both completed the 10 KM successfully, myself in 1 hour 11 mins and my daughter in 1 hour 7 mins. As a university student in Edinburgh, my daughter, short of money, decided to wear a tape recorder and heart monitor for a medic friends Cardiac Project and was duly given remuneration for doing so. Immediately, the Professor, who was supervising the scheme, after reading the results, contacted my daughter, who was diagnosed with a condition called Wolff-Parkinson-White Syndrome (WPW). This is a heart defect which if untreated could have potentially serious implications. After further tests she was admitted into the Royal Brompton and Harefield Hospital for a heart operation carried out by Dr. J.R. Clague which was designed to cure this condition by a procedure called radio frequency ablation. I am glad to say that the seven hour operation was a complete success, although she had to undergo seven "burns" to eliminate the condition. We were lucky to have found out about her condition which could have led to her Fiona and John ready, willing and able dying just by chance. She had been born with this condition and no one had diagnosed it before until the Professor had analysed the results. We are thankful to all who helped us find out about my daughter's heart condition hence the reason for choosing to run the Great Manchester Run to raise awareness through CRY and help other young people who have this condition but are unaware of it, as was my daughter. We send our best wishes and congratulate all who work for CRY and hope that our contribution will help in some way to further the splendid work of this charity." John Bowden and Fiona Bowden.

In memory of jane allen David Bloomfield has raised £900.59 on behalf of CRY by running the Adidas Flora London half marathon. "I first became aware of CRY after the amazing support which you offered the family of Jane Allen (a family friend) who suddenly passed away during her sleep in 2003. Like so many of the tragic stories on your website Jane was just 35 and showed no previous signs of cardiac abnormalities. I completed this year's London half marathon in 1 hour 50 minutes and 14 seconds. Despite being unsuccessful in my application for this years full London marathon, I hope to take part in next years event and would be very keen to raise some more money for CRY. I hope that the money I have raised will go some way in helping CRY to fund some of the numerous worthwhile programmes in operation and to raise awareness of Cardiac Risk in the Young." David Bloomfield.

In memory of claire beer Cathy McLean has entered the Glasgow 10k run for CRY and raised £402. As part of the Barclays Community Programme, Barclaycard have matched fund this donation and we have received £400. Barclays is one of the top three corporate contributors to the community in the UK and our total support reached £32 million in 2004. I am delighted that we were able to add the funds raised by this event and to contribute to your valuable work at this time."

sponsored run Rachel Lander from Sidcup took part in a sponsored run and raised £241 for CRY.

dublin marathon Chris Jowett ran in the Dublin Marathon and raised £251.50 for CRY. 28

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Issue 40

running for cry

in memory of vicky johnson Great North Run for Vicky Johnson in aid of C-R-Y run by Richard Woffendin We would like to thank Richard for running the great north run in memory of our darling daughter Vicky, whom we lost in aug 2003 to sudden death syndrome, Richard the fianc'e of Vicky and dad to Shannon their beautiful daughter aged now 2 1/2 yrs old. Richard was determined to finish the run and wore with pride the sketch of Vicky on his back, he said, from his decision to do the run "that it was for Vicky and he would finish the run in her memory , and as he ran around the course all that kept him going was that what he had promised to do ", and it was all for Vicky to benefit CRY ,he wore the CRY t-shirt and that kept him going ..quick calculations on the sponsorship adds to just over £400.

in memory of pamela Mckenzie "My younger cousin, Pamela McKenzie died from cardiomyopathy two years ago, aged 23. Since then some members of the family have had car boot sales where we have all cleared out as much as we could to help. Someone in the family suggested we run the womans 10k Britannic Asset Management race in Glasgow for the charity too. This was a little daunting as none of us has ever even jogged before but we kept thinking of Pamela and knew we could do it.The race took place on 15 May 2005, from Bellahouston Park in Glasgow. There were 12,000 women there. We ran through parts of Glasgow, Pollok Park and back to Bellahouston. We were all so nervous, but having trained really hard up to the day, we all finished and in good time. It was a fantastic day. The atmosphere was truly amazing and doing this for charity was even better.I would like to say we had a wonderful time doing this and know that all the money raised will be put to good use. I am so proud of my medal and know Pamela would be too. We miss her so much but doing all of the really does help. Thanks." Amanda Meechan. Amanda raised £460, and this was matched by her employer Boots the Chemist with a further donation of £460. "Please find enclosed a cheque for £100 from AEGON UK Services Limited whom I work for and they kindly agreed to sponsor me for the 2004 Great North Run." Jeremy Welch.

In memory of joe spivey “Please find enclosed a cheque for £175 for Joe Spivey's Memorial Fund.This was kindly raised by one of Joes fellow students, who ran the Leeds Half Marathon last year in Joes memory.His name is Simon Bartram he is now a teacher at St. Ingnatius Primary School" Kathleen Spivey.

les gardner london marathon "I have previously run the London Marathon on behalf of CRY, the last time in 2000. Having gained a place in my own right in 2005 I was encouraged to gain sponsorship for the event. Please find attached a cheque for £712.50. I would request that £237.50 is paid into each of the following Memorial Funds: Les Gardner

Pete Surtees raised £501 for CRY after he took part in the Cardiff Marathon. Mr. T. J. Ingham has entered the

Ian Bowen Fund

Dominic O'Loughlin Fund Laura Moss Fund

Great North Run on behalf of CRY and raised £216. "My son - Thomas, greatly enjoyed the run and the spectacle of the day, thank you" J. Hingham (Mrs)

Cardiac Risk in the Young

Issue 40

running for cry

in memory of scott mccollin “Two years ago we lost Scott, a 20 year old member of our family. He died suddenly of heart disorder called Sudden Adult Death Syndrome (SADS). We’ve discovered is a term for undiagnosed heart conditions, which can cause sudden and unexplained cardiac death in the young. Scott died of one of the conditions called Long QT for which none of the family were aware of. We orgainised a childrens Rainbow Fun Run on the 28th May 2005. It was a 5km run around Willen Lake to raise funds for CRY’s campaign in Scott’s memory and to make people aware of this condition. Received from Rainbow Fun Run £2589.80” Melanie Haynes has raised £263 by holding a Fun Run. Jade Shorter completed a Fun Run at Milton Keynes, which was organised by June Dollard, she raised £586.72. Her employees, the Royal Bank of Scotland Milton Keynes are going to match this donation by £500. Further sponsorship of £188 has been received from Linsey Short and Pandora Ford.

We would like to thank the Milton Keynes Citizen newspaper for the Pictures and coverage of our Rainbow Fun Run.

in memory of justin carmen Claire Baker took part in the London Marathon to raise money in memory of her twin sister Vicky’s partner, Justin Carmen, who died four years ago at the age of 26 of Hypertrophic Cardiomyopathy, which he had no idea he had. Justin was a very fit and healthy postman with two children, Ben now aged 7 and Charlotte aged 13. They had just returned to their home on the Isle of Wight after visiting their family in Sutton for the weekend, Justin was on the computer when he got home, then about 9.15pm he just collapsed, Vicky was there with him when he died. The children are now having regular genetic screening. Claire then went on to raise more money and awareness at the David Lloyd Health and Fitness Club in Epsom where Claire is the Gyms studio Co-ordinator. On Sunday the 28th May they held a family fun day where Claire and her work colleagues ran extra classes in palates, aqua aerobics and legs, bums and tums classes and not forgetting the Kelser bikes. They also had a Raffle, Face painting, Magic Tricks and a Barbeque. June Dollard and Lyn Nesbitt also came along on behalf of CRY with a raising awareness table to help out. At the end of the fun day at David Lloyd, Claire raised a massive £2345.33. Claire would like to thank all her colleagues and the members for the help and support in making this all possible, and a special thanks to David Lloyd for allowing them to use his club. Issue 40

Cardiac Risk in the Young

skydiving for cry

Anne Bellworthy of Whitenap, Romsey has carried out a Tandem Skydive and raised £115 for CRY. Terry Furlong from Lancing, West Sussex completed his Accelerated Free Fall Parachute Jump and raised £166, which he donated to CRY.

Kirstie potter enjoyed a skydiving experience and has raised £784.02 for CRY Kirstie 's employer the Bank of Scotland have donated an extra £300 to the total of her sponsorship

Richard Hughes from Kettering, performed a Tandem Parachute Jump in memory of Adam. and raised £120

Charlotte Spackman from Uxbridge, carried out a Tandem Parachute Jump, also in memory of Adam. Charlotte has raised £207 from her jump. Charlottes local pub The Vine, in Uxbridge, Middx., raised £1270 by setting up a 'collection box' in the name of CRY.

Nurana Syeda from Kingston upon Thames, performed a Tandem Parachute Jump and raised £120 Nurana Syeda and Naomi Sutton has send in a further £185.

Lisa Donnelly enjoyed the experience of her tandem parachute jump in memory of Adam and raised £120. Lisa has sent a further donation of £617. Anthony Hoyles from Southampton executed a Skydive for CRY and his sponsorship has raised £215.

"Thanks for a wonderful experience as well as for making it worthwhile to overcome a childhood fear!" Naomi Sutton from Ashford Middx., who raised £494

Danielle Parker of Frinton on Sea has performed a Parachute Jump and donated £100.

Joanne Danbury of Clacton on Sea has executed a Tandem skydive and has donated £100 to CRY..

Jake Sweeney from Failsworth, Manchester has carried out his AFF parachute jump. Jake raised £145 for CRY.

Kerry Gasior enjoyed the experience of a Tandem Skydive and made a donation of £105. Camilla Neate of Stane in Stafforshire has completed a Skydive and raised. £202.32.

Issue 40

Mitin Bhalsod from Northwood, Middx. Executed a Tandem Skydive and donated £130 to CRY. Cardiac Risk in the Young

in memory of peter reynolds

In memory of Peter Reynolds Pete died suddenly on 13 October 2004. The shock, and despair his family, girlfriend and close friends feel cannot be expressed fully in words. Pete was an outgoing and lively 27 year old who lived his life to the full. He was a ‘natural’ at most sports and extremely fit. A black belt in Tae Kwon Do, he also played football and was a regular at the gym where he thoroughly enjoyed weight lifting. In 2003 he completed the Stroud half marathon and also came third in the Tae Kwon Do British Championships held up in Birmingham. There was no sport Pete didn’t enjoy and had recently become skilled at snowboarding and climbing. For several weeks leading up to Pete’s death he was experiencing spells of dizziness, especially when he was training at the gym. Over a number of years he had also experienced the odd heart palpitation or two, some lasting for just a short time, and some lasting longer. With never a day’s sickness in his life, he unfortunately ignored these warning signs until it was too late. The evening before he died he went to the gym as usual, following which he telephoned his girlfriend Becky to say he was experiencing heart ‘flutters’, dizziness and had a ‘burning’ throat. Pete was found dead the next morning lying at the bottom of his bed as if he was asleep. As a family, we ask ourselves ‘WHY’. Why did such a loving and fit son/brother pass away at such a young age? Why were we not at his side when he probably needed us most? Why did he not visit his GP? We found out about CRY shortly after Pete died, and read about all of the other young lives that have been lost in such a similar way. The contact we have received from the team has helped us to stay sane. We waited six weeks for tests to be completed – all came back clear so we will never really know why and how Pete died. All the symptoms point to his heart but we are told it is difficult to test for heart defects once a person has died. Now that Pete had gone, our lives are on hold. We are unsure of how we will go on, and what to do now. Our only focus is to ensure Pete didn’t die in vain. We can’t help questioning ‘What if we knew about SADS and it’s symptoms? We would have made him go to the Doctors.’ It seems that even a majority of the Medical Profession are unaware of it though. We will never be able to bring him back, but we can hopefully help to save others by making them more aware of SADS, working with CRY and helping to get the correct procedures in place for such deaths. Fundraising and awareness has already started. Pete’s brother Andy runs a Tae Kwon do club, and has access to 50 Instructors in the Southwest so is contacting them, Pete’s girlfriend Becky works in PR and has a lot of contacts in the Bristol area, and Andy’s girlfriend is a Personal Trainer in Gloucestershire. Together with Pete’s mum and dad, we will be spreading the word and raising as much as we can. Pete’s Family

fundraising in memory of peter ."Please find enclosed donations totalling £700 received from a variety of sources following the death of our son Peter." Mr and Mrs Reynolds. A donation of £594 has been received for CRY at the funeral service of Peter John Reynolds at Westerleigh Crematorium on 26th November 2004. "My sister Katie Feltham organised a dress down day at Bristol-based AXA Sun Life. Her team raised £100" Becky Feltham (Pete's partner) ."My sister Katie Feltham has been baking lots of cakes and has sold them to colleagues at Bristol-based AXA Sun Life. She has raised £160 and I enclose a cheque to be added to Pete's Memorial Fund." Becky Feltham (Pete's partner) 32

Cardiac Risk in the Young

Issue 40

our fundraisers

in memory of david chance "I wrote to you some weeks ago to let you know of a forthcoming charity event arranged by myself and my friends Anne and Rob Place owners of the Sun Inn Public House in Newbottle, Tyne and Wear. My husband David died suddenly of a heart attack in December 2003 aged 34 years. He had been ill for a couple of weeks but had no idea it was a heart related condition which could have been treated had it been detected sooner. It was an absolute terrible time for both family and friends. David was the life and soul to all of those who knew him, so a big void was left behind in our lives when he died. The only consolation is that David lived his life to the full and lived for the day and never put off for tomorrow. We will never get over David's loss and the void that he has left behind. But as people in similar circumstances would agree, life has to go on as best we can. I have for well over a year now received free voluntary counselling on a weekly basis from one of your dedicated councillors. I would like to take this opportunity to thank her so much for her kind words and comfort when I needed it. I don't think she realises how much she has actually contributed towards me feeling better and I know if I need her she is always there as a valued friend and a very special person. With this in mind we found it only fitting to raise as much money as we possibly could towards the Charity that has helped me and my family towards putting our lives back on track. On Sunday 29th May 2005 some 250 personal friends and work colleagues participated in the days events which included a football match, darts and pool tournaments, raffles, karaoke and auction etc. It was a tiring but very worthwhile day which is reflected in the amount of money which we raised. The day allowed each and everyone of us to reflect on David's life whilst at the same time raise money towards a very worthy cause. I would like to take this opportunity to thank Anna and Rob, and all their staff for their hard work prior to and on the day itself. Also all of those people who contributed towards the days events and helped to raise such a substantial amount of money.We do hope the money raised will go some way towards you achieving your objectives.Again, to all those involved with CRY thank you for all Alex, David’s daughter presenting the trophy to the your support." Deborah Chance and Family. Total Raised £3110 winning team

in memory of jeremy cole Nigel and Jenny Cole have forwarded £253.50 representing the first donation from the Mayor of Eastbourne charity sponsorship 2005/2006.

Nicola and Adam Shergold have raised money, via their website, in lieu of presents for their wedding day, they have raised £1111.67.Nichola's employees The Royal Bank of Scotland have made a 'match giving' donation of £500 "We are delighted to help those community groups, schools and charities where our staff are already making an important contribution in their own time"

in memory of richard bethell Bill and Carol Jones, have donated £170 in memory of their grandson Richard, after holding a 'race-night' held in April.

in memory of adam donnelly "On Saturday 28th May, a group of people completed a 75 mile sponsored cycle ride for CRY in memory of Adam. The enclosed cheque for £765 is the amount raised by Eric and his son Carl Adamson." Julie Donnelly.

in memory of colin doyle "Please find enclosed a cheque for £545 which I received in sponsorship for completing the West Highland Way Walk. This sponsorship money is for CRY in memory of Colin Doyle.The photo shows myself (on the left) and Gary Barker (who also completed the walk for CRY). We are looking at completing the Great Glen Way next year and if all goes will I would like to raise more sponsorship for CRY". Patrick Shea Issue 40

Cardiac Risk in the Young

Our Fundraisers

In memory of stewart howard "Please find enclosed a cheque for £1286. We were lucky Tesco let me have the car park to hold a car boot sale which raised £1226 also Tesco's gave a donation of £30 the girls on checkout raised £30 by not sending cards at Christmas." Jane Howard.

In memory of graham wilfred minister A donation of £500 has been received from Mrs. S. Minister, in lieu of floral tributes at the funeral service of her late husband Graham Wilfred Minister.

In memory of joshua morrison Mrs. Betty Carter and Mrs. Cheryl Arnold of Wells in Somerset held a garden coffee morning in Wells and raised £130.

In memory of levon morland Sandra Morland has taken part in a sponsored walk and has so far raised £210

In memory of paul marrs "Enclosed cheque £140. The money was raised by the staff of this Department as part of their recent 'Dress Down Friday'. On one Friday each month staff are encouraged to dress down and make a contribution to a nominated charity. Your charity was nominated by a member of my staff Anna Dasey to receive the money donated from our most recent event in memory of her son-in-law Paul William Marrs. Paul died suddenly last year, in his mid thirties, following a heart attack, having had no previous health concerns affecting his heart. Since then Anna and her family have been closely involved in supporting your charity.We hope that the enclosed donation will be us useful contribution to the work that your charity undertakes." Derek Sears CO4 Disclosure Service, New Scotland Yard. "Please find enclosed a cheque for £568.29 which has been raised at a quiz night that I have held. As you are fully aware, I raised these funds in honour of my husband Paul's memory. This amount will be matched by Barclays Bank increasing to £1136.58" Phyl Marrs.

In memory of johnathon lee "I enclose a cheque for £840. Mr. & Mrs Lee organized a sponsored pool day 9am - 9pm.They lost their son Johnathon around 2-3 months ago. He had Wolf Parkinson White. He was poorly at birth and received checks from the hospital until the age of 3 years.The consultant told them that their child would grow out of the condition and received no further checks. They were never told at the age of 3 that he had WPW, so you can imagine how devastated they are feeling not only for the loss of their child but also to find out that something could have been done about this condition.They felt that they wanted to do something and after I had told them all about CRY, gave them booklets and information about yourselves they decided to donate the money to you." Julie Hatton.The event was held at the Magnet Public House

In memory of oliver montague "Please find enclosed cheques to the value of £1405 for CRY. This money was collected at the funeral of our son, Oliver Montague, who died of Long QT at the age of 8½ months on 27th January 2005.As you can see from the photo, Oliver was a vey happy, smiling baby. He always had a huge smile and a flash of his big blue eyes ready for anyone he met, and his smile melted hearts. Everyone who was lucky enough to meet Oliver has been affected by his death, and I think this is apparent by the incredible amount raised at his funeral.Oliver was diagnosed with long QT at 3 weeks old. We were told to carry on and treat him as normal, and we were both determined that 34

Cardiac Risk in the Young

Ollie should be able to get out and experience what life has to offer. He enjoyed going out to parent and toddler group, doing Music with Mummy classes and spending time outside in the

countryside. Providing he was getting out and meeting people (and having plenty to eat!) he was very happy.We are planning to host an 'end of summer' ball in Oliver's memory in September to raise some more money for CRY, so we look forward to sending you some more money then!We would like to take the opportunity to thank you for your help and support in the first months after Oliver's death. He remains dearly loved and very missed little man. We are sure that the monies raised in his memory will go to good use and hope they will help to prevent other people going through what we have" Piers and Keri Montague Issue 40

Our Fundraisers

In memory of philippa susan harbour We have contacted you before, shortly after our daughter Philippa died suddenly on 5 July 2003. The post mortem result was death by natural causes unknown, however, at the inquest last year we were told that Philippa had a mass of fatty tissue around the right ventricle of her heart (ARVC). She had not shown any signs of there being a problem prior to her death. On the evening of her death we had been for our usual evening walk, leaving Philippa at home in her room watching TV, her usual cheery self and on our return home we called out "Hello", got no reply and assumed she had fallen asleep after a hard day's work as a trainee hairdresser in a busy salon. When we went up to bed about 1 ½ hours later, she was lying on her floor, headphones on - CD player still going, she looked as if she was asleep but on trying to wake her to tell her to get in bed we realised that she was cold and her lips blue. We called an ambulance and we tried to resuscitate her but it was obviously too late, she was pronounced dead on arrival at hospital. She was 17 and three weeks short of her 18th birthday which she was excited about. Her sister Jeny is two years older and like Philippa was adopted, we do not know of the birth family history of Philippa so were unaware of any heart disease in her family. Jeny, of course, is not a blood relative but they were always very close as sisters. We made every effort to inform Social Services in case they thought it necessary to inform Philippa's natural mother in the circumstances. We all miss Philippa terribly and only now feel able to write this letter and sort out the money side of things. The cheque for £551.90 represents the donations in lieu of flowers (we requested family flowers only at her funeral).Our cheque for £385 represents: a refund of her holiday we booked for her 18th, money from the sale of her flute, a donation from her grandmother, one from grandma's hairdresser and some money from us. We would like to donate these cheques in memory of our beautiful daughter Philippa Susan Harbour." Ann & Steve Harbour, and Jeny.

In memory of badir al-chalabi A cheque has been received, via Dr AlChalabi, for £150 from BMC Properties & Management Limited.

In memory of kimberley stacey The Garston Taekwondo Club once again raise funds for CRY. (£200) on their Annual Taekwondo 'Fun Night'." We always have a good turn out with both Students and Friends putting their 'Hearts and Souls' into the evening, which everyone seemed to enjoy.Hopefully this will continue in the future" Master Dave Sealey

In memory of Vicky Johnson Jackie Johnson has been fund raising throughout 2004 and the final total raised was £2475.08. in memory of Vicky. The Davenport family of the Aesthete Stud in Owston Ferry, Doncaster held a show in 2004 and raised £932. Clare Gladding of Fairytasia Faries raised £444.44, Amanda Howard of Maynards Faries raised £448.71 and Shirley MacKillop of Weefarytales raised £192.31 through their websites. Jackie has again committed to raising funds for CRY in 2005.

In memory of gregory palmer "We are enclosing a donation in memory of our son, Gregory Palmer, for his birthday.We have appreciated your work in raising the profile of sudden unexplained deaths in your people" Janet Palmer. Mrs. Palmer donated £200.

In memory of sean ratcliffe "I am walking the whole of the South Downs Way at the end of May in memory of Sean Ratcliffe who died last year at the age of 9. He had Jervell and lange-Neilson Syndrome. " Anne Rees The amount raised so far is £910 (17/5/05) Issue 40

Cardiac Risk in the Young

Our Fundraisers

In memory of aine McCann "I am a line dance instructor, and after the death of my daughter, Aine, I set up a fund raising appeal at our All Ireland Finals the year before last sponsoring two memorial cups in her name. The aim is to raise money for charity. The first year it went to diabetes, because I was still unsure as to what happened to Aine. Then last year the charity had to go to the south of Ireland, and we raised money for Crumlin Hospital Dublin. The AGM was held last year and I put forward CRY, and it was passed and so this year we are raising the funds for yourselves. I am delighted" A total of £3,700 has been raised at the 2005 All Ireland Line Dancing Finals.

Beware the hair

Aravon McCann

Shocked that his skills were caught on camera!

‘Jazz Hands’

In memory of russell talbot “I emailed your charity a little while ago following the sudden death of my son Russell Talbot aged 17 on December 21st 2004, the result of the inquest found he died from Myocardial Fibrosis and confirmed it fell under the banner SADS.I promised to send you the money raised in lieu of flows so please find enclosed cheques" Greta Sargeant. The total donation was £1006.

In memory of mark houghton We have received a cheque for £175 in lieu of floral tributes at the funeral service of Mark Houghton

In memory of ashley livesey "Please find enclosed a cheque for the amount of £1,000 which has been raised by friends and family of Ashley Livesey, namely 'Team Ash'.The funds were raised by participating in many different events such as organised bike rides, 10k runs, parachute jumps, and a benefit night, all during 2004. As you are aware we lost Ashley our 15 year old son in March 2004 to a sudden adult death syndrome whilst he was running in a cross country event representing his school. We have recently attended the inquest into what happened to Ashley, and after all the evidence and the pathologist report the coroner recorded the reasons as unascertained but as this particular coroner has had to record this in other similar cases and apparently as the law has recently changed he would record the causes as S.A.D.S. which adds some weight to what we are all campaigning towards." Gary and Julie Livesey 36

Cardiac Risk in the Young

Issue 40

Our Fundraisers

In memory of matthew bailey "I am a member of the W.I. and last week we had our Autumn Council Meeting at which we were fortunate to have as one of the speakers our National Chairman, Mrs. Barbara Gill. During the lunch hour I spoke to her and have subsequently written to the Editor of 'Home and Country', the W.I. magazine, and I hope that sometime in the future there will be an article on CRY. I so hope so - I am doing my best to 'spread the word'. It especially grieves me that youngsters are not checked for heart problems because the grandchildren of my brother from Weymouth, who are at present temporarily resident in America, were checked soon after they joined their new schools.Since I visited Cheltenham I have had a birthday, and I am enclosing cash I was given in lieu of presents. In addition I unexpectedly won a prize in the 100 Club of Marshwood School, the smallest school in Dorset. I am enclosing that money and adding a little more to it.Good luck in all your efforts" Pamela Puley.

In memory of Matthew wilkin Ickenham Churches' Womens' Group, Ickenham, Middlesex, have made a donation of ÂŁ280 as a first contribution to the Matthew Wilkin Memorial Fund."The money was raised at our "Summer Sale" on 16th August which included plants, cakes and afternoon teas. The afternoon was well attended and gave us the opportunity to hand out leaflets promoting the work of CRY" Diana Holland (ICWG Leader)

In memory of andrew ridgeway "I would like to donate the collection made at my late husband's funeral to CRY. Having read articles, since Andrew's sudden and unexpected death, I feel that it is appropriate. Andrew was 38 years old when he suddenly collapsed and died instantly with the cause of death being Acute Cardiac Failure and Calcific Aortic Stenosis, which had been a result of undetected rheumatic fever when he was about 5 or 6 years old. Andrew had been a long distance runner since the age of 12, being consistently successful for the Wrexham Athletics Club during his school years and then competing for Wales in the army as a seventeen year old soldier where he came 3rd in the event.Andrew left the army after a short time and stopped competing in races but continued to keep himself fit by going for runs in the evening between 5 and 8 miles. He would cycle to work daily even if the car was available purposely to keep himself fit as in the last year or so he was finding his running more difficult. Eventually he found he had to stop for a few minutes as his chest would tighten and his legs would go "dead" Once he had rested for a few moments, Andrew could complete his run. In the end Andrew went to see his GP who did various tests and sent him for a chest x-ray. Everything came back clear and the GP gave Andrew an inhaler to take 15 minutes before his run, putting is down to asthma. Andrew was to go back if he felt things did not improve. Regrettably, Andrew never went back to see his doctor, assuming that his age was partly to blame for his fitness.Sadly on 19th January 2005 Andrew went out for a run but returned about 15 minutes later saying that he had found it too difficult. He was talking to me in the living room (still standing) about the Man Utd match on the television when he said calmly "I feel dizzy". He fell to the ground and died instantly.When I discussed the Post Mortem results with the consultant he was amazed that Andrew had been able to be so fit with his condition as one of the heart valves was so tight he had been running on only two valves and that we would probably not have considered doing an echo test is he had seen a patient, as he would not have believed that someone would be able to continue to run these distances with these heart problems. He did state that the symptoms that Andrew had were the exact symptoms of the Calcific Aortic Stenosis. This makes me very sad that this wasn't looked into as the reason for it seems to be - of you are fit and healthy, you can't possibly have a serious hear problem.Andrew leaves behind myself, Ceri, and two young son's, Callum, age 9, Same age 4. It still does not seem real, I don't know if it ever will.I was pleased to find this charity as I wanted the donations to go to a charity that would have meant something to Andrew and may have made a difference to him if it had been around when he was younger.I hope this gift helps to make a difference." Mrs. Ceri Ridgeway Issue 40

Cardiac Risk in the Young

Our Fundraisers

In memory of louise worth "I enclose a cheque for £1,600, collected on Louise's behalf, from friends and their colleagues at Fujitsu in Liverpool. "Louise had an evening and weekend job at the Novotel Hotel and she was down to work on the evening of Tuesday June 1 last year. Louise was in a really buoyant mood as she had been out with her friends the night before and had a great time. Before starting work, Louise sat chatting to her mum in the conservatory of their home then decided to go to bed for a lie-down before work and asked her mother to wake her in time. At 5.20pm, Sue entered her daughter's bedroom and - as she stood at the foot of her bed, and with a mother's intuition - she knew her fun-loving daughter was dead. "I just looked at her and I knew in my heart that she was dead. I shouted for Ken and he started to give Louse compressions while I rang for an ambulance. Paramedics arrived and worked on Louise for some time to try to resuscitate her and then they took her to hospital where they carried on working on her, but they could not revive her. At 7pm that evening, they pronounced her dead. Louise was a bright and bubbly girl and we were more like friends than mother and daughter as we shared the same sense of humour. She did really well in her GCSE's at Balshaws High School and was doing brilliantly with her A-Levels at Runshaw and had just started looking at universities where she was planning to study International Business. She was a popular teenage and the house was always full with her friends. Everyone commented on what a nice and mature young woman she was. She had her whole life ahead of her and now it has just gone" Sue Jarvis (Louise's mother) We arranged for a 'Louise Worth Award for Citizenship' to be presented at Balshaw's CE High School where Louise was Deputy Head Girl. It will be awarded for the second time on Thursday 17th November, at the annual Prizegiving Evening. Runshaw College, where Louise was studying 'A' levels, have asked us if we would like to present a cup in her name at their Prizegiving in December. It is to be the Louise Worth Award for Community Action and given to a young person who has helped with fundraising or setting up initiatives to improve the locality in some way. The College are very keen to help preserve Louise's memory and have suggested that they have a Louise Worth CRY Appeal on an annual basis to help raise more funds." Sue Jarvis "I enclose a cheque for £500 made out to CRY, from the fundraising that was held at Runshaw College, where my daughter, Louise Worth, had been an 'A' level student.I understand that one of the DJ's on ROCK FM had picked up on this and mentioned Louise and CRY on their show. This network covers the whole of Lancashire. I did not hear this myself but some of Louise's friends passed on the message.I apologise for the lack of technical jargon in the article. When I was first interviewed for the article I previously sent, I was quoted as saying those things quite out of context. This article was written without talking to me and I have since the original interview, read up rather more on the subject, so I hope it doesn't read too badly." Sue Jarvis

In memory of phil holland I am enclosing a cheque for £300 for CRY. On 23rd July, Jim and I had a joint 60th birthday party and we said that we didn't want any presents but suggested that if people wanted to give us something they should give us a monetary gift in memory of our son, Phil - so that's where this money has come from." Barbara and Jim Holland.

In memory of kevin sayer "Well it's a year ago when I last wrote to you when my son Colin (Forder) and his friend James (Marjibanks) held a charity football match in memory of Colin's friend Kevin and James friend Matt, this event has now taken place again (Sunday August 28th) with all their friends and families getting together to raise money for CRY and the Royal Marsden Hospital where Matt died of a rare form of cancer.We had a Tombola and a raffle and the football game with Colin's Team of Kevin's friends and James Team of Matt's friends, this year it was a draw 1-1 and we had beautiful weather and a friend and I put on a buffet for everyone to enjoy afterwards.I am enclosing a cheque to go to The Kevin Sayer Fund for £260 and hope we can do the same next year" Mrs. S. Forder.

Our Fundraisers

In memory of Robert Lamplough A donation of £500 has been received from Mrs L J Walker, Charitable Trust, in memory of her grandson, Robert Lamplough. Andrew Cumming, James Lawson, Georgie Maynard and Jake Civardi all ran in the New York Marathon and have, to date, raised an amazing £6,648.20 through sponsorship. Georgie Maynard has sent a further donation of £150 after the New York Marathon in memory of Robert Lamplough.

Before the Race, looking worried. Josie de Souza, Chime Communications Plc, has sent in a cheque for £100. This represents sponsorship for the Andrew Cummings marathon team. Alex Clayton has sent in donations amounting to £2,560 for the Robert Lamplough Memorial Fund. A donation of £300 has been received, via Alex Clayton, from the J Liddell-Simpson Charitable Trust, for the Robert Lamplough Memorial Fund.

After the race, still smiling!

In memory of julian wort "Please find enclosed for £710. The Inner Wheel Club of Frome held a Harvest Festival Service, and afterwards an Auction of the produce and gifts that were given, and they raised the above amount. Which is fantastic!Before the service I was asked to say a few words about CRY. The President Hazel Shaw, then told the congregation that although she did not know Julian, she knew a lot of my family, and when she became president she knew exactly which charity she would choose for her year in office, which I thought was lovely." Shirley Wort "Please find enclosed cheque for £200, this cheque was presented to me by "The Woodlanders' who are an amateur group from a nearby village, who every year puts on an Old Time Music Hall show, they always raise approx. £3000, and this is shared out to various local charities/schools/clubs etc. So I was delighted when they chose CRY (Julian's Memorial Fund) as one of the charities this year." Shirley

In memory of jade ryan "Please find enclosed £1322.06. This was a result of a charity event that took place at the Tandoori Parlour, Thundersley, Essex. The event was a sell out 5 days before it took place amassing to 200 people attending. The evening was in memory of Jade Ryan from Hullbridge, Essex who passed last year with SADS at the age of 12 at her school during a PE lesson. As you can imagine this has had a massive impact on the community as well as the school where many children watched Jade collapse. The evening was hosted by Faye Harrison my dearest friend and started with a live band, Lunar Garden whilst guests helped themselves to an Indian buffet. We then held an auction with prizes from famous TV mediums and then the test of the evening was devoted to an evening of clairvoyance by a great medium Ronnie Buckingham and I. Unfortunately we were so busy that no pictures were taken! The evening was an absolute success and Daren and Sandra, Jade's parents, were overwhelmed as was Jades three brothers and two sisters. I am proud to have been part of the fundraising and hope that this contribution will help towards your fantastic charity." Nicky Allan Miss Issue 40

Cardiac Risk in the Young

raising awareness Raising Awareness week Newspapaer Articles: ‘I Say All Kids Should Have Their Hearts Checked...’ - The Evening Standard 04.07.2005 ‘Death By Alarm Clock’ - The Daily Express 31.05.2005 ‘Testing Reveals Disease in Sister’ - The South Wales Evening Post 24.05.2005 ‘Grandmothers Artistic Tribute’ - The Littlehampton Gazette 21.10.2004 ‘Why Did He Die’ - The Guarduan 17.05.2005 ‘Fit and Healthy, Yet Heart Infection Claimes Teenager Nicholas’ Life - The Ulster Star 06.05.2005 ‘The Grieving Family Who Live in Fear...’ The Sunday Express 12.06.2005 ‘Scott’s Relieved Just to be Alive’ - Football First 15.07.2005 ‘Highlighting Plight of Sudden Cardiac Arrest’ - The Tyrone Times 06.05.2005 ‘CRY Charity Launches Fund in Memory of Sebastian 15’ - The Haslemere Herald 25.02.2005 ‘Charlotte’s Memory Lives on in Campaign’ - The Sheerness Times Guardian 17.02.2005 ‘Expert in Warning on Hidden Heart Defects’ - The SouthWales Evening Post 08.01.2005 ‘Plea Right From the Heart’ - The Evening Gazette (Middlesborough) 01.10.2004 ‘Tragic Teens Parents Join Heart Campaign’ - The Tamside Advertiser 16.12.2004 ‘Sendind a Postcard Could Help Save Lives’ - The North Wales Chronicle 04.02.2005 ‘Father and Son CRY out For Support’ - The Chronicle (Coleraine) 04.05.2005 ‘Heart Attack Boy is Campaign Face’ - The Surrey Mirror 24.02.2005 ‘Tragic Young Victims of Cardiac Disease’ - The Thanet Extra 01.03.2005 ‘Dying Young: Can we Prevent Sudden Heart Failure?’ - The Evening Star ‘Why Sports Plays with Young Lives’ - The Telegraph(Derby) 03.02.2005 ‘Gift Could be a Life Saver’ - The Lancashire Evening Telegraph 02.03.2005 ‘Tribute Dinner is Boost for Charity’ - The Sunderland Echo 28.01.2005 ‘A Charity Star Turn’ - The Evening Chronicle(Newcastle) 05.05.2005 ‘Golfers Drive to Help Fund’ - The Kettering Evening Telegraph 25.05.2005 ‘CTC Dance Tribute for Kay’ - The Solihull Times 11.02.2005 ‘Fundraisers go Hot on the Trail’ - The Frome and Somerset Standard 12.08.2004 ‘Race Staged in Perfect Weather for Ducks’ - The Frome and Somerset Standard 28.10.2004 ‘Freinds and Family Help to Boost Fund’ - The Sunderland Echo 16.02.2005

Cardiac Risk in the Young

Issue 40

Raising Awareness Week

In memory of proinnsias mcelhill Newspaper Article and photo received, Sue scanned articles.Helena held events in Castlederg and Omagh Town Centre, her awareness day went very well with local children's entertainer and writer Tom Sweeney visiting the stall to show his support. The local newspapers also attended. Helena raised £25.

In memory of philip abraham Mary Abraham held her Raising Awareness Table at Sainsbury's Supermarket. Mary raised £260 from during Raising Awareness Week and from a strawberry tea Garden Party.

In memory of adam donnelly "On Sunday 12th June we organised the "Adam Donnelly Memorial Football Match at Crown Woods School in Eltham. Adam's old school team (St. Thomas More) played Adam's old football team (Riefield F.C.). The rain thankfully held off for the day as we had a Barbeque and Bouncy Castle in the school grounds as well. Both teams wore their specially printed t-shirts for the match and the game itself was a good, fair game. St. Thomas More eventually won the match 6-1. On Friday 17th June we organised a coffee morning at Our Lady of the Rosary Parish Hall, Sidcup. This was extremely well attended and we had lots of help from the UCM (Union of Catholic Mothers) who all baked wonderful cakes for the day and made all the teas/coffees.The £900 is the amount we made at these 2 events - much more than I expected to make so we are extremely pleased and thankful for all the support we were given." Julie Donnelly.Julie also raised from sale of merchandise £180.On Saturday June 18th Adam's sister Sian (age 13) completed a sponsored swim at Colfe's Leisure Centre in Lee. Sian swam 3,000 metres in 1 hour 8 minutes which was well below her target of 90 minutes. Sian raised £362.50.Adam used to work at Colfe's Leisure Centre Lee as a lifeguard so they kindly agreed to let Sian use the pool there to do her swim, and they kindly put a collection box in their reception area and collected a total of £92.50

In memory of scott mccollin Lyn Nesbitt and June Dollard held a Raising Awareness Table at the Milton Keynes Shopping Centre on 15th June. They found that people were rather too busy doing their shopping to want to look at the stall, but they made sure that a lot of leaflets were distributed, and because they also combined the event with a Tombola they raised £276.

In memory of mandi blake " I was quite pleased with how the day went. I had lots of people asking questions, gave out all the leaflets and only 12 were thrown away (cleaners at Centre picked them up!) Quite a few people said what a wonderful thing CRY was doing as every week they heard about someone who had died from SADS in newspapers or TV." Margo Wright. Margo also held a Tombola and raised £200.

Issue 40

Cardiac Risk in the Young

Raising Awareness Week

In memory of andrew parr Sir Tom Finney came to the Raising Awareness Stall held by Ruth Lowe at Booths Supermarket in Preston. They raised £415 by people guessing the weight of the cake donated by a local bakery.

In memory of ricky and jason 2"I held a stall for a few days during your 'Raising Awareness Week' in memory of Ricky & Jason. I had a collection box on my table and collected £97.22. I had leaflets left which have been distributed around local libraries, also enclosed order for car stickers. I was happy to help" Caroline Harvey.

In memory of jane allen "After initial difficulties in trying to obtain permission to hold the stall near by home in London, I finally managed to get permission to have it outside my parents local Sainsbury's in Guildford. This turned out to be the best location after all as we had a lot of interest from people on the way in to do their supermarket shopping.My mother and I held the stall on Friday, so the good weather helped, and we ended up staying there for almost 7 hours. During this time we gave away a lot of CRY literature. We also managed to sell some of the merchandise, they were mainly a good way of attracting people's attention to the stall.An average of about 5 people/minute who passed the stall throughout the day, therefore over 2000 people will have passed us during the whole time we were there - a lot of whom stopped to find our more, so I think we were successful in increasing awareness of CRY and its work." Clare Allen Clare raised £129.10

In memory of lee stables "Please find enclosed a cheque for £1,400 raised during the awareness week in memory of our son, Lee Stables aged 22 yrs." We found that because we filled the balloons with helium and gave them to passing children, the parents stopped to find out what was going on and 99% of the time either bought something or made a donation" Sharon, Phil and Toni.

In memory of edward patrick beatty & Lloyd swain "In Memory of Edward Patrick Beatty who died in his sleep aged 19 years. Also Lloyd Swain who died in his sleep.Thursday night we loaded up my husband's work van ready for the Awareness stall Friday. I had asked Pam Lloyd's mum if she would help and she arrived early Friday morning. My daughter Laura said she would help set up the stall, but ended up staying till the end. Pam was a God send as the workmen set up the stall, she promptly asked if we could have more table space to set up the Bric a Brac we had taken to try and raise more money. It was a glorious sunny day our canopy matched the CRY display my sister Maureen arrived and started handing out the CRY literature. How did the day go? Mixed feelings some people did not want to know, but others showed an interest. Selling Bric a Brac helped to get people to the stall.Awareness was what it was all about and if I only got through to ten people that day it was all worth it for Edwards. Enclosed cheque for £166.37" Pauline Beatty. 14

Cardiac Risk in the Young

Issue 40

Raising Awareness Week

In memory of david longhurst The staff, children and parents of Cardinal Newman Catholic Primary School in Hersham, Surrey held a fund raising and awareness week for CRY at the end of June. This formed an integral part of the school 'Health and Fitness' Week and activities included a whole school 'exercise to music' afternoon, a 'walk to school' day in which 250 children participated, sports events, dance and gymnastics, aerobics and a 'name the giant heart' competition (the winning name was Beattie the Happy Heart).Deputy Head Teacher Steve Tindall also organised a CRY awareness stall at the school PFA Fun Day on June 11th. Several hundred parents and friends visited the stall during the day, giving donations and taking away CRY leaflets.CRY Representative Edwina Farrow attended a special whole school Assembly during the week to talk about the work of CRY and present the children with pin badges and CRY wristbands. The whole week was a fantastic experience thoroughly enjoyed by the whole school and we managed to raise ÂŁ607 for CRY in memory of David Longhurst.

In memory of lyndsey bowe Angela found that people who knew her, and knew about her daughter were keen to support but older people were not really interested and some of them had the attitude it didn't affect them. She found people were interested in reading the Quarterly Update. Angela raised ÂŁ105 for CRY. Issue 40

In memory of thomas mulquin Anna raised awareness by attending her monthly 'Dance Event' wearing her CRY T shirt. She had a lot of interest and was able to tell everyone about CRY. Cardiac Risk in the Young

Raising Awareness Week

stall in aid of cry "We had our stall exhibiting leaflets etc during part of our village open gardens afternoon during which approximately 90 people passed through our garden. Some people expressed an interest and we explained our connection with CRY. The most popular piece of literature appeared to be small general leaflets all about CRY but something of everything seemed to go. A few people made donations into our collection box." Anne Jackson

In memory of jamie gault Margaret held a Raising Awareness Stall at the Ballyeaston Vintage Tractor Rally, she found that people who visited the stall were sympathetic, interested and supportive. The photograph shows: James Gault, Murray Elliot, Alan McAnally, Deputy Lord Mayor, Steven Bowes, Club Official, Margaret Gault, Lucy Bowes.

in memory of carl ashcroft & andy gard For CRY's 10th anniversary we had 2 awareness raising days in Colchester town centre in memory of Carl Ashcroft and Andy Gard. On the Friday Carl's mum Juliet and his youngest sister Chelsea had a stall, then on the Saturday Caroline and Cathy Gard shared the day with Marian and Julie Tanner. We gave out leaflets to passers by and generally talked to anyone who paused to look at the stall.Juliet and Chelsea worked really hard to set up the stall ,decorating it with balloons and posters and generally making it look really interesting bright and very eye-catching. We spoke to loads of people and gave out plenty of leaflets over the 2 days. All the best, Caroline Gard

hm prison high down in sutton HM Prison High Down in Sutton kindly agreed to make the tablecloths for our Raising Awareness Week. Officer Robin Willis, who is responsible for the textiles workshop, was extremely pleased with the hard work of the prisoners who enthusiastically finished them all in time, and to a very high standard.

in memory of angela colligan "We are members of Balornock Bowling Club in Glasgow. We held a Charity Bowling Day on Sunday 12th June, 2005 including other bowling clubs and it was gratifying to know that others were wanting to know more about Cardiomyopathy." Julie and Alan Colligan. Julie raised £750 on the day.

in memory of anthony weaver Helen held her Raising Awareness event at Cheshire Workshops, she found the response was generally good and that quite a few people had already heard of CRY or read stories.

in memory of david Sara was unable to obtain a location to hold her Raising Awareness Table, but she distributed our literature to her Church, Library, G.P's etc.

In memory of christopher wheatley "My employers Sainsbury's were very happy to donate a cheque for £250, and I've enclosed one for £100. My manager was very interested to hear about CRY, especially as it coincided with their healthy kinds vouchers.Christoper died in 1992. "It was not until I 'phoned Alison, after reading a paper cutting about a girl who died in similar circumstances, that I got to know all about Christoper's problems. They didn't know how he survived to twenty-four, not only did he play football but he was a keen swimmer, and ran the cross country races for his school. He had gained his mile swimming badge and up to gold for his survival badges. He never had a day off school, or work, - he was a jeweller.I have found the information from CRY very helpful. Its not been easy, the last few years have been difficult. I have just finished over two years of counselling, which has helped greatly.In May 2006 Anthony (Christopher's brother) and his fiancé will marry in the same local church as Christopher, fifteen years to the day almost! The cycle goes on!" Ann French. 18

Cardiac Risk in the Young

Issue 40

Raising Awareness Week

In memory of michael looker On 9th June Vera Looker held a Raising Awareness Staff at the Cascade Shopping Mall in Portsmouth. Vera found that some people were extremely interested and others did not want to know. She was supported by the Lord Mayor of Sparshott and his wife.£15.53 was kindly donated on the day.

In memory of paul marrs

In memory of julian wort Shirley Wort held her event at Frome

Alison organised an arrangements of CRY literature at her children's 'Mouse House Nursery'. Three days a week she stayed at the nursery giving out leaflets and answering questions parents had. Phyl Marrs held a quiz night to raise awareness for CRY and in honour of her husband Paul's memory. Phyl had made a donation of £568.29

library where she found the staff were very helpful. She invited Mr. David Heath, MP for Frame and Somerset

In memory of simon cox Caroline held a Raising Awareness Table at her local M & S Store and also at a car boot sale. The car boot sale raised £200."On the whole I found the public response to be very good. We spoke to parents of a 17 year old girl who has been unwell. She has collapsed a few times and doctors can't find anything wrong. The parents aren't giving up and after a long chat they went away with plenty of literature because a heart condition has been mentioned" Caroline Cox.

north wales fund 224 Squadron held a fund-raising day on the 25th June 2005 to raise money for The Army Benevolent Fund (ABF) and Cardiac Risk in the Young (CRY). It is with great pleasure I can inform you the total amount of money collected was £2000. A great effort from all willing volunteers.A car wash was held at Picton Barracks, Carmarthen and a bedpush was carried out in the following towns: Fishguard, Haverfordwest, Narbeth, Saint Clears and Camarthen.The car wash raised £386.96The bed push raised the following: Bucket 1 = £573.21 Bucket 2 = £632.53 Bucket 3 = £407.30 The following personnel carried out the tasks as listed below:Money collection - Sgt Matthews, Cpl Corp Fitzsimmons and L/Cpl Beynon.Money counters - Maj Coombes, Capt Edwards, WO2 Mudd and SSgt Charlton." NA COOMBES TD tacsc OC 224 Sqn.

In memory of gary little

In memory of justin carmen

Lillian Little held a table outside

June and Lyn Nesbitt also held a Raising

Sainsbury's Supermarket in Redhill. She

Awareness Table at the David Lloyd Health

had a lot of interest and overall was very

and Fitness Club in Cheam as part of the

pleased with the response, all the litera-

event being held by Clair Baker in memory of

ture was taken.

Justin Carmen.

Issue 40

Cardiac Risk in the Young

Bulletin Board

Overseas challenge events are one of the most successful fundraising initiatives to have been introduced to the UK in recent years and due to popular demand Skyline are now increasing their exciting range of overseas fundraising events. From cycling across Peru to braving the heat by trekking across the desert, Skyline gives you the opportunity to raise thousands for CRY. Interested? Then contact the CRY office for more details.

London Marathon Every year, CRY have a number of Golden Bond Charity Places available for any willing person to tackle the infamous event. We also welcome any ‘own runners who would like to raise money for CRY. For more details please contact the CRY office

"If you sell items on eBay, it is now possible to donate a percentage of the sale value to CRY. When listing an item to sell, the page that asks you to set the starting price for bids on your item, also now has an option to 'donate to charity'. Click here and follow all the instructions, and you will be able to select CRY as your charity of choice. The 'eBay for Charity' scheme was piloted by the BBC's Children in Need appeal, and is now open to all charities that register for the scheme. If you have any queries about how this works, please contact Kerry in the CRY office at kerry@c-r-y.org.uk"

"Our Price records are offering a new service to anyone holding a charity event that incorporates a raffle or auction. Our Price has a catalogue of varied memorabilia items that can be acquired for such events. The pieces include music memorabilia, film memorabilia, sporting memorabilia - and more. In return for supplying up to four items for an event, Our Price will keep 50% of the final sale value / raffle proceeds from each item, with the other 50% going to charity. To see the items in the Our Price memorabilia catalogue go to www.ourpriceplc.com. If you would like to find out more about how this scheme works, please contact Kerry in the CRY office @ kerry@c-r-y.org.uk"

RING FENCED FUNDRAISING Please remember that unless you notify us and get the necessary documentation and confirmation from the office for “ring fenced” fundraising before you start a fundraising venture, all funds raised will be used for CRY Core Funding. Retrospective “ring fencing” is unfortunately just not possible. CRY cannot be responsible for any “ring fenced” fundraising unless it has been authorised. “Ring fenced” fundraising is for specific projects only. After the successful conclusion of the authorised project, fundraising will be directed again to CRY Core Funding. Because of the appeal of certain projects, some will have a waiting list.

Please bear in mind when Please give me a call or If you would like CRY to organising fundraisings that it email me if you have any would be brilliant if you could take consider any item for suggestions on how you Bulletin Board please email photos of your great day. It is also essential that when you write would like the content of your future fundraising (including your item) in to the office, that you clearly pages to be laid out . state how much was raised, by through to Mark at: Best wishes whom and if it’s for a specific mark@c-r-y.org.uk Mark Fox memorial fund. Issue 40

Cardiac Risk in the Young

God’s Lent Child I’ll lend you for a little while a child of mine, God said, For you to love while he lives, and to mourn for when he’s dead It may be six or seven years or forty-two or three But will you, till I call him back, take care of him for me ? He’ll bring his charms to gladden you, and should his stay be brief, You’ll always have his memories as a solace in your grief. I cannot promise he will stay, since all from earth return, Bur there are lessons down below, I want this child to learn. I’ve looked this whole world over in my search for teachers true, And from the folk that crowd life’s lane, I have chosen you. Now will you give him all your love and not think the labour vain Nor hate me when I come to take this lent child back again ? I fancy that I heard them say” Dear God, Thy will be done, For all the joys this child will bring the risk of grief we’ll run. We will shelter him with tenderness, we’ll love him while we may, And for all the happiness we’ve ever known, we’ll ever grateful stay, But should the angels call him much sooner than we’d planned, We will brave the bitter grief that comes, and try to understand”. This beautiful poem was handed to Tony and Evelyn Sayer as they entered the church for the funeral of their son, Kevin, on 4 April 1995. Eighteen year old Kevin died on the night we left Norwich after our first player/public screening. We hope it’s words comfort you and bring you peace.