CRY Update Magazine - Issue 22

Page 1

BI-MONTHLY UPDATE News, Views & Do’s -

♥Meet our Representatives ♥Newsletter ♥Kids for CRY ♥♥♥♥♥♥♥Eleanor’s Interview ♥Jokes Corner ♥Puzzles ♥Our Fundraisers ♥Raising Awareness ♥Bulletin Board

CARDIAC RISK in the YOUNG Issue No. 22 November / December 1999 CRY SUBSCRIPTION AND / OR DONATION FORM Name............................................................................................... Address............................................................................................ Please use .....................................................................Post Code................... the enclosed FREE Telephone ........................................................ Date...................... POST envelope

Annual subscription for 6 bi-monthly updates - £3.00


MEET OUR REPRESENTATIVES IN DORSET - IT`S GLORIA & ALAN MOSS We live in Weymouth, a busy holiday town. Beautiful and tranquil. Alan worked away all week but when he came home at weekends we were always together. The perfect family. In 1997 we decided that family life was too important to miss and decided to start our own business. We were so excited that at last we could all be together. Our daughter Laura was a top national athlete. A high achiever in everything she did both academically and on the sports field, she excelled most at swimming. At 13 she was the fittest and healthiest child with a big smile and a mischievous sense of humour. She loved life, and everybody loved Laura. On November 28th, 1997, she went to our local pool in Weymouth to represent her school. A very low-key event. She was in her warm-up when she collapsed and died at the poolside. She was 13 and had never suffered any illness. It is difficult to explain the total shock and despair that we have gone through since that day. Our beautiful talented daughter was dead. We had believed that life was going to be so good. We were all going to be together. That night has changed our lives forever. Though her autopsy showed nothing, we were told that the most probable cause of death was Long QT Syndrome. A very rare heart arrhythmia which had for a split second stopped the electrical current which works the heart muscles. How could we believe a child so fit could die of this? The first we heard of CRY was when the Coroner sent us a CRY Brochure hoping that it would help us understand what had happened. In the first few months the support from CRY was so important. In our darkest despair we were able to talk and cry. We found someone who could try and give an explanation. We were very angry that the support from our GP was non-existent and that the Swimming Authority was not prepared to test other top young swimmers to prevent another tragedy. It became so difficult to do the simplest task and many friends disappeared. People crossed the road. We felt like lepers. Slowly we are trying to rebuild our lives, motivated by the need to be strong for our other 2 children. We have found fund raising so difficult. The mention of Laura's name and coming to terms with her death is still a constant battle. We only now feel able to start to support CRY by raising awareness locally. We have so much wanted to help but only now have felt that we were ready. We know that without CRY's support we may never have got as far as we have.


NEWSLETTER NOVEMBER / DECEMBER 1999 It is disappointing that we have to start this final newsletter of 1999 for the November / December issue of our Update, with an apology for the production delay. This has been due to problems with our new printer which has stubbornly refused to co-operate ever since we moved office. Tony has been desperately pursuing all avenues, and we have finally been rescued by countless visits from System Support engineers. Our January / February Update will unfortunately also be subsequently affected, but normal production will resume for our March / April Update. The final months of 1999 were a busy and dramatic time for CRY. With the help of the CRY van we moved office ourselves in November to a leasehold unit in an Industrial Estate in Tadworth Surrey. We are now negotiating to formalise this agreement into a 3 year contract, at which time we will officially notify you of our change of address and new number. CRY has seen such rapid growth since May 3rd 1995 that we have now had to restructure the organisation of our representatives, and introduce guidelines under the instruction of the Trustees and with the supervision of our solicitor. We will now be introducing 8 Divisional Representatives in the UK who will be invited to meet annually with our Trustees to make them cognisant of developments in their area. Divisional Representatives will be supported by County Representatives who will work with our fundraisers and helpers. CRY's Christmas Cards were a stunning success with over 10,000 sold and even more ambitious plans for next year. Thank you to everyone for working so hard to publicise these, especially of course Caroline Gard and Jo Cross our Christmas Card co-ordinators. In December Dr and Mrs Al Chalabi arranged for the Chief Executive of the Cardiomyopathy Association and myself to meet with the Shadow Health Secretary Liam Fox at a constituency dinner at the Carlton Club. We were given the opportunity to appraise him of the issues of sudden cardiac death in young people and he appeared particularly interested as a friend had died in this way. SO - if the Tories get in next time - and IF he is still Health Secretary - maybe SOMEONE IN A HIGH PLACE will start helping! As you will read in this issue, our Frinton mobile screening in memory of Andy Gard was a great success, and we were particularly proud to be able to use our new CRY Mobile Screening Van for the first time. Captain Harry is looking forward to developing a unique relationship with this beautiful machine which is held in awe by all that have seen it! Particularly impressive was the hydraulic lift which removes all anxiety for the off and on loading of our CRY echo machine. We would like to take this opportunity of again reiterating special thanks to the Andy Gard Memorial Fund for donating all the fitting out costs (ÂŁ10,000) to Adrian Woodhead for donating his Ford Voucher ( 25% reduction off the purchase price) to Nigel Cole for all his tremendous administration efforts in sorting out purchase, fitting and delivery of this superb vehicle and most of all to the Trust that donated the wonderful ÂŁ20,000 to us. Our Van story will be highlighted in our next issue. 1999 was an incredible year of growth for CRY. Thank you all for making so much possible.


ELEANOR’S INTERVIEW WITH

Julie Tanner Our new KIDS FOR CRY EDITOR ELEANOR:

How old are you?

JULIE:

I am seven years old.

ELEANOR:

What School do you go to?

JULIE:

I go to St Philomenas School, In Frinton - on - Sea.

ELEANOR:

What would you like to do when you leave?

JULIE:

I would like to go to University and train to be a Teacher.

ELEANOR:

What are your interests?

JULIE:

I like reading, sewing, history, english, drawing, drama, netball and guitar.

ELEANOR:

How did you get involved with CRY?

JULIE:

The reason we started with CRY was because my friend Andrew died of a heart attack.

ELEANOR:

Has raising awareness of CRY in Frinton worked, if so how?

JULIE:

Yes a lot of people know about CRY. We saw a banner in the High street with CRY on it. There are a lot of fundraising events.


Theme - Christmas

Photo-Call WHAT IS AMERI SAYING TO JULIE? .... ... .... ..




ELEANOR McDOWALL We would like to say a very special thank you to Eleanor who has been the Editor of The Kids for CRY section since our very first Brochure In 1995. In that time the Brochure has exploded, and we have sent out thousands of them over the last 5 years. Eleanor is now 14 and concentrating all her efforts on her ever increasing school work. She has done a wonderful job for Kids for CRY, and we are very grateful for her support SPECIAL THANKS TO PETER McDowall WHO HAS DONATED HIS BEAUTIFUL APPLE MAC COMPUTER TO CRY

WORDSEARCH

can you find these words?


MALCOLM CRATE RAISED £1,200 IN MEMORY OF JOANNE FOTHERINGHAM BY RUNNING IN THE FLORA LONDON MARATHON After running my first ever marathon in London in 1998 I decided it was also going to be my last. Too much pain and mental anguish for my liking. But out of the blue in January 1999 Mike Foster, London Marathon Co-ordinator for CRY, phoned and offered a place if I was prepared to raise £600 in sponsorship. My immediate reaction was, no way, but after taking a day or two to consider and after speaking to Alex Fotheringham I was delighted to take up the challenge. Alex Fotheringham's daughter, Joanne, was my daughter's primary school teacher when in 1997 she was taken from us without warning. Joanne had come across from Ullapool to teach in the Isle of Lewis and in the short time that she spent here her personality touched so many of us, particularly the children. The suddenness of her death at such a young age remains a shock. Alex, founded a memorial fund for CRY with the aim of providing a screening programme in Lewis and around Ullapool. Raising the required £600 in sponsorship proved to be no problem and more than double that figure was eventually pledged. With my training complete I embarked on the long trip to London on the Friday before the race. A three-hour ferry journey across the Minch to Ullapool was followed by an hour by bus to Inverness. Easy jet carried me south to Luton and then there was a short train ride to Friday rush hour at Kings Cross. A nightmare hour was spent lost amongst the crowds before I finally made contact with my wife's cousin. Even after being down in London the year before the pace of life was still a shock to the system. On Saturday it was off to register at the London Arena, the atmosphere of the event hits you as soon as you walk in. As the man behind the desk typed my details into the computer he remarked that I had come a long way, the Kenyans queuing on the other side probably thought differently. The journey to Blackheath for the start is a trauma in itself, apart from being only 7.30 in the morning, there were massive crowds trying to cram themselves onto the trains. Those who managed to get seats looked smug and the atmosphere was tense. I took the advice that was widely given to make sure I was well hydrated before the race. So as two and a half litres of Highland Spring Water sloshed around inside me as we walked from the station to Blackheath Park there was an urgent call of nature. The toilet cubicles at the park were ten minutes away but I was too hydrated to wait. I found some bushes at the side of an office building and having regained my composure realised that I'd just had a pee against the wall of Blackheath Police Station. On Blackheath Park the crowds were massive, my token gesture to fancy dress was a tartan bonnet, but all around were various super-heroes, wombles, teletubbies and sundry furry creatures making adjustments to their running shoes. I was meant to meet a fellow runner from the Stornoway Running Club here but she was lost amongst the sea of people. The first six miles passed through residential areas and I remember the smell of barbecues from back gardens and the sound of music coming from every pub along the way. The crowds of spectators were huge at Cutty Sark and the sound was deafening. In the narrow streets after the Cutty Sark I felt claustrophobic surrounded by spectators and runners. Definitely not what I'm used to on my usual Sunday morning runs. A D J on the roof of a pub made a derogatory remark about Scotsmen and I felt better. A little further on some people were standing outside a pub with bacardi and cokes in their hand and I was tempted. The next few miles are a blur until the approach to Tower Bridge. I do not mind admitting I got a lump in my throat at the amazing sight of the crowds as the bridge opened out in front of me. I made a promise to my kids that I would wave to every television camera I saw, and true to my word I virtually had to get down on my hands and knees to wave into the lense of a camera that was trying to record the feet of the runners streaming past. Canary Wharf was a stunning sight as we passed below the tower. But now it was beginning to hurt, and disaster struck just after the twenty two-mile marker as cramp hits my left leg and I hopped ungracefully to a halt. I wanted to cry as I furiously massaged my leg, but eventually I could walk again and then run, but having stopped it hurt and despite the drums, bands and even a pipe band the experience was less than enjoyable. A shout from the crowds and I spotted my wife's cousin and his wife who had spent all morning chasing around London to support me. All I managed was a weak smile and a wave. Birdcage Walk was amazing as the crowds urged us on over the last mile. Then the road turned into the wide-open space of the Mall with the finish line in sight. In the stand someone shouted 'Come on CRY' and I felt like taking them literally. The joy of crossing the line was replaced with agony as the cramp came back and I staggered into the arms of a steward who propped me up while I waited to collect my medal. Later after a hot bath and then a pint of beer the morning's efforts seemed like a distant dream. But the pain in my legs was a reminder that it wasn't. The journey back on Monday morning was lightened by the sight of fellow sufferers crossing the tarmac at Luton Airport looking like saddle weary cowboys. Eventually I was back in Ullapool waiting for the ferry and I was met by Alex and Fraser Fotheringham. They thanked me for my efforts but I was humbled to meet such nice people who have suffered such heartache. It`s important to them that the money raised for the Joanne Fotheringham Memorial Fund for CRY helps to spare even one family what they are going through.


FAMILY AND FRIENDS OF COLIN DOYLE HAVE RAISED Colin was only 30yrs old when he died suddenly on 27.09.97. His death was recorded as Sudden Adult Death Syndrome and it is suspected that the cause might have been Long QT Syndrome. He left a young widow Alison, and 2 little children. Son Joshua 4yrs, and daughter Georgia 3 months. Colin had moved to Cornwall in 1996 but had lived in Slough most of his life and played local Football in and around the area during this time. Colin loved his Football and when he moved continued to play with his local Cornish Villiage Team Gwinear. He worked for Camborne Post Office. Richard & Annmarie Haynes (close friends of Colin`s) and their team have been very busy organising 2 highly successful events in memory of Colin for CRY. In June a Disco was held at The Slough Post Office Sports & Social Clubhouse in the evening, and in the afternoon a Football Match took place involving friends & colleagues of Colin which ended in a memorable 2 - 2 draw. The Disco was well supported by around 120 people of which 60% knew Colin. As you can see below everyone had a brilliant time, and raised a wonderful £790.00 for CRY. The 2nd Colin Doyle Memorial Football Tournament has also taken place, in August the 2 day festival was hosted at The Royal Standard Pub, Gwinear by Landlord John Dale which included a pool, darts, and golf competition, Sports Quiz, Snail Racing, Tug-o-War, stalls, a buffet lunch, barbeque, children’s activities, and the Football Tournament. (pictures of this event appear on next page). The volunteer bar staff Mo June & Bob

DJ Jumbo hots up the Disco

The “crowds” starting to gather

Joshua & Georgia (Colin`s Son & Daughter)

from L to R Barry Rowe, Annemarie Haynes, Pat Shea, Alison Doyle, and Richard Haynes


A BRILLIANT £2655.00 IN HIS MEMORY Taking part in the events were teams made up of friends and former colleagues from Slough, Camborne Post Office, and Gwinear Church Town FC. The whole weekend was a great success raising a super £865.00 with special thanks to Barry & Rose Roe, Richard & Annmarie Haynes, Pat Shea and Sean Wilkins, also to John, Rosey & Cath Dale and all at The Royal Standard. Raising awareness was also well organised with the local press showing a keen interest. With a very special thank you to Richard`s Employer Nortel Networks who operate a “Good to give scheme”, they will match any contribution to charity by an employee up to £1000.00. Nortels generosity has helped to swell Colin`s fund to a fantastic £2655.00 Pat Shea warms up the video camera - ready for the weekends activities

Sean Wilkins from Camborne kicks off the penalty competition

The crowds gathered around the centre circle of the football field at 10.15am for a minutes silence in Colin`s memory

Nicky Troon the eventual winner of the penalty competition

The raising awareness board which was displayed at the disco and the tournament

Never a dull moment with the local volunteer children’s entertainers

Georgia “The Clown-ess” Doyle

The “Tombola” Team minus Alison & Georgia Doyle

The “alternative” musical entertainment on Sunday night

Barry Rowe being presented with his glass plaque

Bev & Nick receive The Colin Doyle Memorial Trophy...

...for the 2nd year running


DURHAM CONSTABULARY HAVE RAISED £5000.00 FOR AN ECG PROGRAMME IN MEMORY OF SCOTT DONKIN Scott died age 10 in September 1997 after collapsing while warming up for a game of mini Rugby at his club on Tyneside. Shortly after the tragedy a fund raising committee from The Durham Constabulary was set up, including Det Chief Insp Harry Stephenson, Marion Bainbridge, Det Constables Shaun Bailey, John Speight, PC Kevin Alder and PC Brian Donkin (Scott`s Dad). The plan was to raise £5000.00 for an ECG machine to screen youngsters who are at risk. Officers organised a series of events including a “Coast to Coast cycle ride” which raised a brilliant £1400.00 and within 18 months of near constant fundraising they have achieved their goal. What a fantastic achievement! The campaign was backed by celebrities Gabby Yorath (who lost her brother to the condition) and Barry Venison, both from ITV`s “On The Ball” programme. The CRY ECG Machine will be based in Newcastle`s Freeman Hospital, but will also be available to Football, Rugby, and other clubs for special ECG testing programmes.

From L to R Barry Venison, DC Shaun Bailey, Marion Bainbridge, Kevin Alder, Chris Campbell, Supt Harry Stephenson, Gabby Yorath, and DC John Speight


THE TINY COMMUNITY OF ULLAPOOL HAS RAISED AN INCREDIBLE £6808.78 IN MEMORY OF JOANNE FOTHERINGHAM Joanne graduated with honours from the Northern College of Aberdeen as a Gaelic Medium Primary School Teacher. She took her first post at Bayble School on the Isle of Lewis which she enjoyed immensley and created a wonderful bond with her pupils, fellow colleagues and pupil`s Parents. Her sudden death on 05.04.97 at the age of 24 shocked and saddened the whole comminity. She was laid to rest on the Isle of Lewis which was a place she dearly loved. A beautiful memorial Garden has been created in her honour by her school

Bayble School on the Isle of Lewis where Joanne was a Teacher held a Raffle and a Sponsored Walk. They raised the wonderful sum of £1174.00. A “BIG” thank you to all the Pupils, Staff and Parents Machair - a Scottish T.V. soap filmed on the Isle of Lewis gave a donation of £250.00 A dance was organised by some of Joanne`s friends and was held at the British Legion, Stornoway, Isle of Lewis. The brilliant sum of £773.00 was raised

The Inner Wheel of Stornoway, Isle of Lewis gave a donation of £150.00

The Argyle Hotel in Ullapool held a Quiz Night and raised £120.00 McNeills Bar, Stornoway, Isle of Lewis held various fund raising events and raised the brilliant sum of £600.00. They have also sold a lot of Scottish Cry badges especially produced in memory of Joanne Another dance was held in Ullapool, in the Villiage Hall. Organised by some more of Joanne`s friends, this raised the great sum of £500.00

The Air Training Corps in Ullapool completed a 13 mile sponsored walk , “Wilderness Challenge” and also raised the fantastic sum of £1,200.00. They have said they will do the walk each year for Joanne`s Fund


FRINTON MOBILE SCREENING WAS HELD ON OCTOBER 23/24 The weekend started on Friday on a damp note with Alison, myself, and three very soggy dogs getting caught in what can only be termed a deluge on the beach. It was the beginning of 3 days which saw this part of the east coast being subjected to the edge of the hurricane which had previously been lashing the American coast! Nice of them to share it with us! Later we realised we had got off pretty lightly as everyone else had been caught up on the dreaded M25 in the same rainstorm, and the traffic was brought to a standstill. Harry finally arrived at 8.00pm, having been driving through the previous night to get back from Belgium, and then having driven all day through these terrible conditions after collecting all the equipment from St George's . He really is an inspirational person to have around, no problem too large and unfazed by everything. A very big thank you to "Capt. Harry "! The equipment was set up by Harry in the hall of the local school (our venue for the weekend), and on Saturday morning the first of our "clients" started to arrive. Everything went fantastically, mainly due to the amazing CRY screening team of Harry, Annette, Ken and Sanjay, who managed to arrive on the train by early pm despite having been on call all night. Another big thank you here to Sanjay for coming along to Frinton in such inclement weather, and having just completed a house move. What an amazing group of people all committed to the CRY screening weekends and how incredible it was to see them at work. Thanks also goes to our two ECG technicians, Loretta and Angie, from the local hospital who came along and operated our ECG machine for the two days, which meant that Sanjay did not have to be tied to this role. The weekend also saw the launch of the new CRY screening van, which has been modified to transport the equipment to venues for the mobile screening sessions. The van is absolutely amazing and the hydraulic lift on the back makes the unloading of all the heavy and delicate equipment so much simpler for Harry. I had arranged for a rota of volunteers who are friends, to come along during the weekend and (wo)man the reception desk, help the youngsters with their questionnaires, and make lots of tea and coffee! Another friend, Liz, having been asked if she would mind rustling up a few sandwiches for lunch, came along with a picnic second to none with sandwiches the like of which had everyone coming back for more! And then came the cakes! Another thank you to all these people who helped to make the weekend run smoothly. Thanks also to Adrian Woodhead. Adrian came along and helped with everything from putting up banners to packing up Christmas cards. It was great to have him there. Finally, thanks also to Alison for coming along to give her support to the weekend and bringing the menagerie (2 Dogs & a Parrot). It was, as always a delight to see them all, even when they were dripping on the carpet! The whole weekend was an incredible tribute to Andy. For ourselves, we learnt a great deal about the screening process, and to see the team in action was fantastic. For many of the young people who came along to be screened, who had known Andy and played sport alongside him, this was their chance to have a real check up and I know how grateful they were, which makes for a very worthwhile weekend. Caroline & Peter Gard


IN MEMORY OF ANDY GARD The CRY Frinton Screening Team

What - another Questionaire!

Don`t worry I won`t plug you into the mains!

Is that Annette with Mel Gibson promoting Echo-ing?

Consultant Cardiologist Dr Tony Handley discussing CRY`s programme with Caroline

Who could resist buying CRY Christmas Cards from these 2 crackers

What did you say an ECG was?

Peter Gard - chatting up the CRY volunteers Dianne & Ginny

Capt Harry telling the P.M about CRY ?

Sanjay and Harry having a reccy

ECG Technician Loretta Vant with Caroline & her CRY/Frinton ECG Machine


BULLETIN BOARD NEWS FROM SCOTLAND CRY WOULD LIKE TO THANK SCOTTISH REPRESENTATIVE LYNNE LEWIS FOR ALL HER HARD WORK DURING THE TIME SHE SPENT WITH US. LYNNE REALLY HELPED TO PUT CRY ON THE MAP IN SCOTLAND BUT AFTER ATTENDING A RECENT TRUSTEE`S MEETING AND BEING SUBSEQUENTLY INVITED TO BECOME A DIVISIONAL REPRESENTATIVE, SHE DECLINED BECAUSE SHE FELT SHE COULD NOT WORK WITHIN CRY`S GUIDE LINES. LYNNE HAS NOW RESIGNED AND IS HOPING TO START HER OWN CHARITY, AND WE WISH HER WELL IN HER FUTURE.

URSULA BICK

NEW CRY GUIDELINES

BECAUSE OF THE GROWTH OF CRY, GUIDELINES FOR REPRESENTATIVES ARE BEING INTRODUCED WHICH WILL BE AVAILABLE ON REQUEST. CRY WILL BE INTRODUCING 8 U.K DIVISIONAL REPRESENTATIVES WHO WE WOULD LIKE TO WILL BE SUPPORTED BY COUNTY REPRESENTATIVES. OUR CRY SEND OUR GOOD ADMINISTRATOR JAN SMITH IS ALSO WISHES TO URSULA WHO IS RECOVERING PRODUCING A MANUAL ON “GETTING INVOLVED WITH CRY” WHICH WE HOPE FROM MAJOR TO HAVE READY BY MARCH 2000

ABDOMINAL SURGERY

E MAIL CONTACTS Keeley Ashley - Keeley.Ashley@Supplies-Team.co.uk Roy Ball - royandgillball@selcroftavenue.freeserve.co.uk Nigel & Jenny Cole - nigel1949@hotmail.com Jo & Charlie Cross - chascross@compuserve.com Mike Foster - foster1m@aol.com Caroline Gard - carolinegard@hotmail.com Harry Hindle - capt.harry@tesco.net Anne Jolly - jollyjon@netcomuk.co.uk Alan & Gloria Moss - mosses@cherrystonescottage.freeserve.co.uk Jan Smith - jsmith@sghms.ac.uk Adrian Woodhead - adrian@woodhead88.freeserve.co.uk

More and more people are using email as a fast and convenient way of communication. If you would like to be put on our CRY list, please email us with your details.


BULLETIN BOARD IF ANYONE HAS GOT ANY QUERIES ON ECG PROGRAMMES OR MOBILE SCREENING ENQUIRIES PLEASE CONTACT JAN SMITH CRY`S ADMINISTRATOR AT ST GEORGES HOSPITAL MEDICAL SCHOOL ON 0181 725 5098 OR jsmith@sghms.ac.uk

OFFICE FURNITURE APPEAL We have now moved into local offices and desperately need Office Furniture. We would very much appreciate items donated or at very special prices.

CHRISTMAS CARDS 2000 WE ARE NOW PLANNING OUR CHRISTMAS CARD SELECTION FOR THIS YEAR. IF YOU HAVE A CARD DESIGN YOU COULD DONATE TO CRY WE WOULD BE MOST GRATEFUL TO HEAR FROM YOU.

PLEASE CONTACT CAROLNE GARD ON 01255 - 673598 OR VIA E MAIL carolinegard@hotmail.com

Would you like to run in The London Marathon for CRY?

especially sound proofed panels! Please contact the CRY Office if you can help us in any way WELL DONE MARALYN BOWEN ON BEING AWARDED A CERTIFICATE IN BASIC COUNSELLING SKILLS. A GREAT START TO THE DEVELOPMENT OF Mark Fenlon at the Line in 99! CRY`S COUNSELLING If so please contact Mike Foster on PROGRAMME phone 01329 231734 fax 01329 280379



CRY`S Powerpoint Presentation is now available in either CD ROM or FLOPPY DISC formats. Ideal for fundraisings where a computer can be used to display information about CRY. Also featured is CRY`S Website so if any of you haven`t got access to the Internet and you would like to see the site now`s your chance! The cost is £10.00 inc P&P and can be obtained from the office

SECTION 64 GRANTS CRY was again unsuccessfull in it`s application for a Section 64 Grant for 1999. If anyone would like the list of successfull applicants please apply to the office

Luci’s Locket for CRY Luci has designed, especially for CRY, a superb sterling silver (or 9 carat gold) locket which opens to hold two photos. The silver chain can be any length up to a maximum of 20 inches, and the locket can be personalised with the addition of any initial. The cost, including post, packing & insurance is £75,00 and order forms are available from the office. Gold initial and clasp are available for the additional charge of £15.00. All lockets are made individually, hallmarked and engraved on the back with CRY and our ECG line. Maureen Ward CRY`s ECG “Consultant”! Maureen has offered to talk to anyone needing help with organising Mobile Screenings, ECG Testing , or Ethical Approval. You name it. She`s done it! Try her on 01834 843742

LATEST STATISTICS NOW REVEAL THAT NEARLY 1 IN 100 CHILDREN ARE BORN WITH A HEART DEFECT

June Boulton is dedicating all her fundraising money for office furniture and equipment, in memory of her 17 year old son John, who died suddenly last year in his sleep of Sudden Adult Death Syndrome. She is doing a “Pubs & Clubs” circuit & would be grateful for Raffle prizes. If you have any ideas or prizes please contact her on 0151 287 2519

ESPECIAL THANKS TO NIGEL COLE FOR THE FANTASTIC AMOUNT OF TIME HE SPENT IN ORGANISING THE ORDERING & DELIVERY OF OUR WONDERFUL NEW VAN


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