BI-MONTHLY UPDATE News, Views & Do’s -
♥ Meet our Representatives ♥ Newsletter ♥ Kids for CRY ♥♥♥♥♥♥♥ Julie’s Interview ♥ Jokes Corner ♥ Puzzles ♥ Jan`s Report ♥ Our Fundraisers ♥ Raising Awareness ♥ Bulletin Board
CARDIAC RISK in the YOUNG Issue No. 23 January / February 2000 CRY SUBSCRIPTION AND / OR DONATION FORM Name............................................................................................... Address............................................................................................ Please use .....................................................................Post Code................... the enclosed FREE Telephone ........................................................ Date...................... POST envelope
Annual subscription for 6 bi-monthly updates - £3.00
MEET OUR REPRESENTATIVES IN STAFFORDSHIRE - IT`S URSULA & JOHN BICK We came to live in Tamworth in January 1960. At that time it was a small country town with a large farming community. It had a population of 30,000 people, now the number has quadrupled and it is mostly involved with light industry. At that time we had two children and Tamworth seemed the ideal place to bring up a young family. David our youngest son was born in September 1962. He was a beautiful child, robust and healthy; when he started school he was always the tallest in his class. He was very keen on sport and athletics. He loved rugby and captained the school rugby team. He also played for Tamworth Colts and was selected to play for Staffordshire Schoolboys. For years in succession he would win the triple AAA's shield and I would teasingly complain about having to polish it. David died on 23 January 1996. He was thirtythree years of age. John and I were on an 'Around the World' tour, we were travelling in South Island, New Zealand when our eldest son telephoned to say that David had died. We could not believe that our beautiful, super-fit athletic son had died so suddenly. On the previous day he had gone to work as usual, he returned home at 2300 hours; made himself a drink and went to bed. He died in his sleep at 0320 hours. His girl friend Laura found him twelve hours later. David died of Obstructive Hypertrophic Cardiomyopathy (HCM) which is the most common cause of sudden cardiac death in the young. It is hard to accept that this lovely, caring young man has gone from our lives forever. His death devastated our family and his many friends. Two years after his death a friend sent me a newspaper cutting out of the Birmingham Mail. It showed a picture of Roy Ball and gave information regarding his involvement with CRY. I was so impressed with what I read that I contacted Roy immediately. I felt that here was an organisation that not only supported research into Sudden Death Syndrome, but offered help and counselling to families who had suffered from a young sudden cardiac death. John and I offered our support to CRY in any capacity whatsoever. We are not fundraisers but felt that we might have other talents that could be utilised. Before retirement John worked as a Maintenance Engineer, I was a Practice Nurse and did voluntary work as a Bereavement Counsellor. We now work for CRY on the ECG Screening Programme and I am taking the CRY Certificate in Counselling Skills Course. We feel that our involvement with CRY has helped to ease the burden of our loss. We know that we are not alone in our grief and it is our fervent hope that in the not too distant future a solution will be found through early screening and research to prevent other tragedies such as ours.
NEWSLETTER January / February 2000 CRY took its first step into the Millennium with what felt like one foot with a running shoe on, and the other with a perforated wellie boot! Thanks to the tremendous spirit of the CRY office team led by our Removal Chief Tony and our Office Administrator Sylvia, the move has been a fantastic success but the upheaval was traumatic! We are only just now finding out what we have actually misplaced that is definitely NOT responding to being searched for! We have also been sorting out a number of time-consuming administrative issues including documentation to formalise the loan/donation of ECG machines to doctors` surgeries and hospitals, doing a core funding breakdown for all of you to see where your money goes, writing a manual (available in late Spring) that will explain what CRY does and how you can all help us do it and resolving the dispute over the retrieval of CRY goods from our Scottish Representative Lynne Lewis. Just to clarify this issue - if a Volunteer is no longer associated with CRY it is a legal requirement that all assets must be recovered as CRY must account for them. It is most unfortunate that a misunderstanding seems to have arisen with Lynne with regard to ownership of purchases/ work done during her time working as a Volunteer with CRY. Tony's printer problems have now been sorted and with the output of this Update he is optimistic that the March/April issue will be on time. There will have been three consecutive months fielding Brochure Updates - no wonder we feel we are pumping iron at the moment! We have reorganised our Representatives structure and will be having 8 UK Divisional Representatives with formal signed Guidelines in place to outline the support CRY will be giving them. I would like to take this opportunity of welcoming Sinead Chapman and Marie Greene who are to be our newly appointed Northern Ireland and Eire Divisional Representatives. Divisional Representatives will also be selected for Wales, Scotland and North, South, East and West of England. We are now currently in overload on our ECG Testing Programme! There has been such a strong response to this initiative that we have had to temporarily introduce a wait list until all our "first" group of Programme Managers are up and running to their satisfaction. The Cliff Richard Tennis Trail are for the fifth consecutive year supporting CRY by putting our information into all of their school resource packs which will go out to 200 State Primary Schools that they visit and we would like to say a very special thank you to the Director of the Foundation Sue Mappin who has been so very supportive of our campaign. We have now had the first of our 6 residential CRY Counselling Training weekends with 13 students participating in our specialised course for selected CRY Volunteers. This is being held at the University of Wolverhampton where our Chairman Dr Greg Whyte has organised facilities for us. The course is under the experienced tutelage of Julia Cayne whose patient good humour and skill has reassured most of her students, most of the time! So with all this behind us, and many exciting things beckoning, I believe CRY is well primed for the Millennium - and poised to take a deep breath, discard the wellie, and be prepared with both running shoes laced and ready - to burn track again!
JULIE`S INTERVIEW WITH
MARALYN BOWEN TRAINEE COUNSELLOR FOR CRY JULIE
How did you first get involved with CRY?
MARALYN
After loosing my 19 year old son Ian from Wolfe Parkinson White Syndrome, I read a magazine article and then telephoned CRY.
JULIE
What did you have to do to be awarded a Certificate in Basic Counselling Skills?
MARALYN
I went to a local college. I had to keep a journal, do a 2000-word research project and also an applied situation.
JULIE
How will you help CRY after you have done their Counselling Course?
MARALYN
I hope to be able to take some of the pressure off Alison and the office staff.
JULIE
What is it like counselling?
MARALYN
It is very interesting. A parent can feel comfortable and reassured speaking to you, knowing that you have been through what they are going through.
JULIE
What is it like raising money for CRY?
MARALYN
It can be hardwork fundraising, but the social evenings are very enjoyable and usually good fun.
JULIE
Does your husband Kenny help you? if so, how?
MARALYN
MARALYN
Yes, Kenny helps a lot and some of the things Kenny has arranged himself, e.g. a Coast to Coast Bike Ride. I hope that CRY can convince the Government of the problem of Sudden How much money have you raised for CRY? Death Syndrome and then they will accept some responsibility and screen children About ÂŁ16,000.00 up to now. in school as part of their medical.
JULIE
What sort of things have you done to raise money?
MARALYN
Raffles, Tombolas, Coffee Mornings, Pie and Pea Suppers and Quizzes. Also a lot of sponsored events e.g. Coast to Coast Bike Ride, Head Shave, Boxing Day Dip into the North sea and Marathons.
JULIE
What sort of person do you need to be to be a counsellor?
MARALYN
Approachable, genuine, understanding, sincere and honest.
JULIE
What do you hope for CRY in the future?
MARALYN
I hope that CRY can convince the Government of the problem of Sudden Death Syndrome and then they will accept some responsibility and screen children in school as part of their medical.
JULIE
Theme - Counselling
Photo-Call WHAT ARE THESE TWO UP TO ? ....... . . . . . .!
Counselling is about Listening & Hearing
IN MEMORY OF IAN BOWEN Michael Cousins age 12 took part in The Junior Great North Run and raised a fantastic £137.00 Special thanks to Peter McDowall who has donated his beautiful Apple Mac Computer to CRY Core Funding. Peter is pictured here on top of one of the 11 Monroes he climbed for Cry raising £379.65.
WORDSEARCH
can you find these words?
ELTHAM STINGRAYS SWIMMING CLUB RAISED £1502.30 This fantastic amount was raised by some of the swimmers from the Club by participating in a Sponsored Swim, which was held during one of their training sessions. Sheila Clarke CRY`s London Representative went along to start things off and stayed to talk to the children and the parents. Everyone had a great time and the swimmers did brilliantly. The youngest were 7yrs and some of their older brothers and sisters joined in as well. Special thanks to Pat Middleton for organising the event, she wrote in to tell us “I didn`t dream we would raise this amount of money”. Also to the Eltham, and the Welling McDonalds Franchises for making sure no-one was left thirsty by donating some Orange Juice. Safeway Supermarket Blackfen also helped out by donating Mars Bars at a reduced price so everyone could have one after their Swim. (also see Raising Awareness)
MIKE SCOTT MEMORIAL FUND 1/2 dozen students made a Static Line Jump in Bridlington, they included Claire & Rachel, who were at the time attending Lady Lumley`s 6th Form (Mike`s old School). After a days Ground School they were ready to go. One CRY Jumper had never flown before! (Well done Gazzer). You can see below how exciting the expierience must have been. A fantastic ÂŁ754.00 was raised in Mike`s memory. Claire & Rachel are all kitted up and ready to go
Are you sure this thing will really fly?
Claire`s brave descent
Claire`s brilliant landing
Rachel`s brave descent
After the jump.... WOW that was great!
...And Rachels brilliant landing
What a fantastic achievement - well done girls!
JAN SMITH CRY`S ADMINISTRATOR REPORTS FROM Alison has given me an opportunity to write a "Reporters Review" on what's happening here at St George's. This will be a regular slot in the Update Brochure, so I hope it will provide a general overview of progress and pitfalls with particular regard to CRY's medical initiatives. It will also give me a chance to let everyone know of developments and issues all at the same time. Talking with some of the CRY families on a more regular basis than others means that information does get about, but not necessarily in the right order! Many people who move into a brand new post have what's known as a "period of rest", prior to the work taking off - not quite the case with CRY! A rather solid looking box-file was handed over, and that was it, I was up and running. A big thank-you goes to Mike Foster for his help and patience (ongoing!) over me taking on the files relating to the ECG Programme. So, we now have a fully functional office based within Cardiological Sciences. The telephone number is 0181 725 5098, Fax No is 0181 725 5905 and the e-mail is jsmith@SGHMS.ac.uk The correct address is at the bottom of the report. I currently share office space with Dr Sharma which has proved very helpful. We don't see each other on a daily basis, but it means that CRY has better access to the medical team who support our work. Firstly, an update on medical initiatives: SCOTLAND - We are pursuing CRY's ECG Community Testing Programme in the West Lothian area and making steady progress with the local Council Board who are pleased to now have the opportunity of working directly with CRY. Alison Cox will be visiting the Council with Dr Sharma in early May to discuss plans for the ECG Testing Programme. In the Highlands, Alex Fotheringham is storming ahead with Ethical Approval and has approached two Councils, one is the Western Isles Health Board, the second being the Highland Health Board . Western Isles has already responded to the initial submission and we have responded to their question in time for the next meeting of the Ethics Committee at the end of March. The application to the Ethical Committee of the Highland Health will be made in time for the end of March too. Well done Alex! WALES - Maureen Ward applied for Ethical Approval via Dyfed Powys Research Ethics Committee. The project has received a good response with just a few points to settle. These have been answered bar one, and we are pushing for information on the level of support that West Wales General Hospital might be able to offer. In case you aren't aware of this, each Ethical Application form is different, so we can't have set answers to questions. EASTERN ENGLAND - Caroline Gard as Divisional Representative for East of England will shortly be pursuing Ethical Approval via the East Essex Health Authority. CRY will only be progressing a limited number of Ethically Approved Programmes at this stage
CARDIOLOGICAL SCIENCES ST GEORGES HOSPITAL MEDICAL SCHOOL as they are very expensive and time consuming projects to manage and maintain. Issues around Testing and Screening: Jo and Charlie Cross have booked another CRY Mobile Screening weekend in Northumberland. They have had terrific support for this event and Dr Sam Firoozi will be going up to join them along with our Field Manager, Harry Hindle, the Man with the Van. Irene Wickers will also be running a Mobile Screening session, but we need to confirm that provisional dates will be OK for the rest of the team. Granville Staff is aiming to have a session, based within the school that his son David attended later on in the year. Much work has been carried out on improving our working relationship with Marquette Hellige, our ECG supplier. Thanks also go to John Bick for putting in long hours discussing our needs with Marquette to ensure that CRY receives the best possible service. We are planning to meet with the MD in early April to resolve a few long-standing issues. GENERAL I realise that many of you will have been wondering why your own particular project has not progressed as fast as you would have wished. Quite a lot of time has been spent on resolving one key issue, essentially concerning academic rights to CRY's material and property. We have moved forward on this, and hope to have this particular issue fully resolved in the near future. Alison, Mike and I are in the process of devising a manual for CRY contacts. This will give a full explanation of finances within CRY, options for involvement with the Charity, how to deal with the media, clarification of roles within CRY and a full explanation of how the 25% core funding is used. This will help both newcomers to the Charity and those wishing to clarify certain aspects of involvement. Once the first draft is complete, a number of CRY contacts will be approached for comments/amendments. With this in place, the intention is to approach the business community for financial support for CRY. A lot of the work I handle on a day-to-day basis is both absorbing and rewarding, but it's not the stuff of headlines. I receive a lot of one-off requests for assistance or information and they usually require a speedy response, so prioritising can become a bit of juggling act. CRY is both proactive and reactive to its workload at the current time, and I am enjoying being part of an organisation which offers families such a specialised service. Please feel free to contact me at any time if you have an issue regarding the testing or screening programmes, or indeed anything that falls outside the remit of Head Office - I'd be happy to help. I'm away for two weeks from 21st March - but look forward to keeping you up to speed with further developments. Best wishes, Jan CRY Administrator, c/o Cardiological Sciences, 2nd Floor, Jenner Wing, St George's Hospital Medical School, Cranmer Terrace, Tooting, London SW17 0RE.
LIZ FOY RAISED ÂŁ2,000 IN MEMORY OF SARAH LOUISE WILLIAMSON On May 11th 1998, which incidentally is my birthday, I went for my first ever run - half a mile up the road and I was walking!! I ended up covering two miles that day, part running and part walking and then decided that I would like to run the London Marathon. I had always had a sort of secret ambition to do something like that but had never done anything about it until then. I put these mad ideas down to my age, but I think other people have different explanations?! On a serious note, my real inspiration was that in March 1998 a little girl, Sarah Louise Williamson who was in my class at Martock School, died suddenly and I felt I would like to do something worthwhile in her memory. So I decided to run the Marathon in aid of CRY, in memory of Sarah. Anyway the decision was made and I told as many people as possible what I had decided - now I couldn't back out! Sarah's Mum and Dad, Sharon and Lewis, were very supportive right from the start, although it was obviously a very difficult time for them. I started running on a more regular basis and gradually built up the miles until I could run 6 miles fairly comfortably. I tried to push to the back of my mind that I would need to run four times that distance and a bit more to complete the Marathon! I then joined a local running club and with their support and encouragement began extending the distances I could run. I'd like to be able to say increasing my speed as well, but! - anyway I trained hard and apart from an injury which set me back slightly, everything went very well. My training included leading all three hundred pupils of Martock School in a Mini-Marathon around and around and around the school playing fields. This event raised ÂŁ800 in aid of CRY, which was our chosen school charity for the year. All too quickly it was April 17th - pre-race day. I travelled to London by coach accompanied by Sharon, Lewis, my two sons and Rob Butler and his family. Rob was also running the Marathon in aid of CRY. The day of the Marathon dawned and I felt sort of detached - could this really be me? Probably not! But then there I was, lining up with thousands of other people of all ages, shapes and sizes ready to run the 26.2 miles. It took 12.7 minutes to get to
BY RUNNING IN THE FLORA LONDON MARATHON the start line and we were on our way. The atmosphere was brilliant - so many people all shouting encouragement and so many runners. The first mile seemed quite long but then I settled down and got into a sensible pace and began to enjoy myself. I ran with Jasmin who I met at the start and we stuck together all the way round. At 11 miles, I was feeling good - I wasn't worrying about my time, all I wanted to do was to finish, to enjoy myself and to run all the way. My son Luke and some other friends were waiting at around the 11-mile point and their 'personal' encouragement was brilliant. Somewhere amongst the crowds at the Cutty Sark, I heard my name and briefly caught sight of Sharon and Lewis. When I reached Tower Bridge, about halfway, the atmosphere was electric - so many people just willing you to run. I kept hearing shouts of "come on CRY lady!" (I must say I'm not often called a lady) and it made me feel really special. As I headed for the Docklands area, coming back up the other side of the road were those runners at the 20-mile mark, lucky devils! Never mind, only a little loop and I would be there too. The little loop was actually quite a long loop but I enjoyed it all - the bands, the music, the cheers, the chant, how could you fail to be inspired! Anyway, eventually there was the 20-mile mark - and another 6 miles to go, now I really knew I could do it. At 23 miles there were some friends and colleagues from school who were there to cheer me on. I heard later that they had also seen me at Tower Bridge, probably at the time I was too busy posing for my photograph so I didn't notice them! 24-miles and there was Jody my other son, and Claire his girlfriend, waiting patiently and watching all the runners go past. By the way the cobbles were over and done with - I hardly noticed them, well - not much anyway. All too quickly there was Big Ben and I knew the end was in sight. Here the crowds were really thick and they shouted and cheered and almost seemed to carry the runners along. By this time I was still running - a bit slowly maybe, but I didn't walk a step - in fact I was worried about whether I would be able to walk when I needed to. Buckingham Palace to the left and I swung round in to The Mall and what did it say in big letters across the road? It began with F -, yes it really was the FINISH. I had done it! As I ran over the line my thoughts did a flashback - was this really me? Had I really done it? And Sarah's lovely little face came into my mind. "Yes, I had done it - thank you Sarah".
FAMILY, FRIENDS, WORK COLLEAGUES AND BUSINESSES HAVE ALL HELPED TO RAISE Caroline Lucas was a bright, happy & beautiful 3rd year student studying Biomedical Sciences at Durham University. She had been considering her career options which could have involved working in Cancer Research, going abroad to do Post Graduate Research, or seeking a Research Grant to do a PHD. On January 19th 1999 she said goodnight to her parents after revising for an exam, went to bed and died. Caroline was just 21 years old. The Pathologist said at the inquest that it was entirely possible that it was a case of Sudden Death Syndrome
Following her Death several fundraisings have taken place. Caroline`s Uncle Ian Henderson`s work colleagues from GN Netcom started off the fund with a donation of £65.40 and it has been gathering steam ever since. The Sunderland Careers Service where Iris (Caroline`s Mum) works held a 60`s Revival Dinner Dance which was attended by Tony and Iris who enjoyed an excellent evenings entertainment with a live band and a raffle & raised a super £511.00. The Great North Walk (see opposite photo page) raised a brilliant £1,007.91. A Charity Concert was held and raised a fantastic £2,429.42. And 4 runners (seen below) raised a great £307.50 by competing in The Great North Run. Barclaycall (who are the telephone answering service of Barclays Bank) Sports and Social Club held a one off fundraising at their Doxford Park, Sunderland Call Centre and raised a fantastic £622.00. Two National Banks on a matched £ for £ Charity Donation Scheme also helped the fund with a great £500.00 from Lloyds / TSB Foundation, and Barclaycall donated a whopping £2,778.04. All of this has happened in just over a year! Tony (Caroline`s Dad) writes “We hope that the contributions we have forwarded to you will assist in saving at least one young life and prevent another tragedy occurring to another family like ours” Andy Traynor & Ian Hornby Great North Run
John & David Allison Great North Run (David competed in the Junior event)
A FANTASTIC £8,227.35 IN MEMORY OF CAROLINE LUCAS The CRY Walkers were Iris Lucas (Caroline`s Mum), Evelyn Brace, Suzanne Hoole, Elspeth Hornby, & Ian Hornby (Caroline`s former Boyfriend).The Great North Walk was 10 miles in and around Durham City - they`re on their way!
Crossing The River Wear
All The CRY Walkers resting outside the beautiful Durham Cathedral Suzanne Hoole - on route
Evelyn, Elspeth & Iris enjoying the walk
Elspeth, Evelyn, Iris, Ian & Suzanne showing off their Certificates after completion
CRY COUNSELLING COURSE 2000 Ready to go
The CRY counselling course is being held throughout 2000. Participating students are finding it challenging,exhausting, nerve wracking and very worthwile. Course Tutor Julia Cayne has said how delighted she is with the commitment and responsiveness of her group of Trainees
A time for some serious reflection
What a great answer!
Have Maralyn & Roy colluded on this one?
Julia fielding another provocative question
CRY COUNSELLING COURSE 2000 Keeley`s “Role Play” gives Julia plenty to think about
Thank God that`s over!
I wonder if that is what Freud really meant?
Sinead & Marie getting down to business....
A welcome break for Mike and Caroline
....fortified by some English tea Winding down after a long day
BULLETIN BOARD NEW CRY GUIDELINES
IF ANYONE HAS ANY QUERIES ON ECG
PROGRAMMES OR MOBILE BECAUSE OF THE GROWTH OF CRY, SCREENING ENQUIRIES GUIDELINES FOR REPRESENTATIVES ARE BEING INTRODUCED WHICH WILL PLEASE CONTACT JAN SMITH BE AVAILABLE ON REQUEST. CRY CRY`S ADMINISTRATOR AT ST WILL BE INTRODUCING 8 U.K GEORGES HOSPITAL MEDICAL DIVISIONAL REPRESENTATIVES WHO SCHOOL ON 0181 725 5098 WILL BE SUPPORTED BY COUNTY REPOR jsmith@sghms.ac.uk RESENTATIVES. OUR CRY OFFICE FURNITURE ADMINISTRATOR JAN SMITH IS ALSO APPEAL PRODUCING A MANUAL ON “GETTING INVOLVED WITH CRY” WHICH WE HOPE TO HAVE READY BY LATE SPRING2000 We have now moved into local offices and CHRISTMAS CARDS 2000 desperately need Office Furniture. We would very WE ARE NOW PLANNING OUR much appreciate items CHRISTMAS CARD SELECTION FOR donated or at very THIS YEAR. IF YOU HAVE A CARD special prices. DESIGN YOU COULD DONATE TO CRY WE WOULD BE MOST GRATEFUL TO HEAR FROM YOU. especially sound proofed panels! PLEASE CONTACT CAROLINE GARD ON 01255 - 673598 Please contact the CRY OR VIA E MAIL Office if you can help us carolinegard@hotmail.com in any way
E MAIL CONTACTS Keeley Ashley - Keeley.Ashley@Supplies-Team.co.uk Roy Ball - royandgillball@selcroftavenue.freeserve.co.uk Nigel & Jenny Cole - nigel1949@hotmail.com Jo & Charlie Cross - chascross@compuserve.com Mike Foster - foster1m@aol.com Caroline Gard - carolinegard@hotmail.com Harry Hindle - Capt.Harry@ntlworld.com Anne Jolly - jollyjon@netcomuk.co.uk Alan & Gloria Moss - mosses@cherrystonescottage.freeserve.co.uk Jan Smith - jsmith@sghms.ac.uk Adrian Woodhead - adrian@woodhead88.freeserve.co.uk
More and more people are using email as a fast and convenient way of communication. If you would like to be put on our CRY list, please email us with your details.
BULLETIN BOARD Special thanks to Julian Cox for organising the donation of 7 terrific Office Desks & 8 Swivel Chairs from Ellis & Partners to our new CRY office
Would you like to run in The London Marathon for CRY?
THANK YOU- to Lorraine Cooper for offering to do voluntary typing for the office If you would like Tony to consider any item for Bulletin Board please fax details (including your item) through to him on 01372 279335
RING FENCED FUNDRAISING Please remember that unless you notify us and get the necessary documentation and confirmation Liz Foy for Sarah Louise Williamson 1999 from the office for “ring fenced” If so please contact Mike Foster on fund raising before you start a fund phone 01329 231734 fax 01329 280379 raising venture all funds raised will It was with great be used for CRY Core Funding. concern we learnt about Sinead Retrospective “ring fencing” is Chapman (our new unfortunately just not possible. Northern Ireland CRY can not be responsible for Representative) any “ring fenced” fundraising requiring urgent surgery. Get well soon Sinead and we look forward to having you unless it has been authorised. back on our Counselling Course ASAP! There were 8,000 nominations and only 365 were selected. If anyone knows who nominated Alison to be a Children`s Champion please call the office
Anyone requiring CRY Posters or Sponsorship Forms please contact Mike Foster Projects Manager on 01329 231734 or via e-mail - address on opposite page
CRY`S Powerpoint Presentation is now available in either CD ROM or FLOPPY DISC formats. Ideal for fundraisings where a computer can be used to display information about CRY. Also featured is CRY`S Website so if any of you haven`t got access to the Internet and you would like to see the site now`s your chance! The cost is £10.00 inc P&P and can be obtained from the office
SECTION 64 GRANTS CRY was again unsuccessfull in it`s application for a Section 64 Grant for 1999. If anyone would like the list of successfull applicants please apply to the office
Luci’s Locket for CRY Luci has designed, especially for CRY, a superb sterling silver (or 9 carat gold) locket which opens to hold two photos. The silver chain can be any length up to a maximum of 20 inches, and the locket can be personalised with the addition of any initial. The cost, including post, packing & insurance is £75,00 and order forms are available from the office. Gold initial and clasp are available for the additional charge of £15.00. All lockets are made individually, hallmarked and engraved on the back with CRY and our ECG line. Maureen Ward CRY`s ECG “Consultant”! Maureen has offered to talk to anyone needing help with organising Mobile Screenings, ECG Testing , or Ethical Approval. You name it. She`s done it! Try her on 01834 843742
LATEST STATISTICS NOW REVEAL THAT NEARLY 1 IN 100 CHILDREN ARE BORN WITH A HEART DEFECT
June Boulton is dedicating all her fundraising money for office furniture and equipment, in memory of her 17 year old son John, who died suddenly last year in his sleep of Sudden Adult Death Syndrome. She is doing a “Pubs & Clubs” circuit & would be grateful for Raffle prizes. If you have any ideas or prizes please contact her on 0151 287 2519
ESPECIAL THANKS TO NIGEL COLE FOR THE FANTASTIC AMOUNT OF TIME HE SPENT IN ORGANISING THE ORDERING & DELIVERY OF OUR WONDERFUL NEW VAN
PLease bear in mind when organising fundraisings that you take photos if at all possible of your great day it will also be extremely usefull to Tony if when you write in to the office that you clearly state how much was raised, and by who Thank you
Christmas Cards 1999 Thank you to Jo & Charlie Cross who donated ÂŁ1,000 to cover printing costs of their Christmas Cards which enabled CRYto make a profit for the 1st time
CRY pubicity to watch out for The BBC Series The Practice Programme Name Second Chance week begining
Have you run in The Flora London Marathon for CRY? did you raise at least ÂŁ1,000? would you like to be featured in our Update Brochure? can you write an account of your run in 400-700 words? can you supply a photo of yourself at the event? If you have answered yes to all of the above please fax Tony on 01372 279335