CRY Update Magazine - Issue 24

Page 1

BI-MONTHLY UPDATE News, Views & Do’s -

♥ Meet our Representatives ♥ Newsletter ♥ Kids for CRY ♥♥♥♥♥♥♥ Julie’s Interview ♥ Jokes Corner ♥ Puzzles ♥ Jan`s Report ♥ Mike`s Report ♥ Our Fundraisers ♥ Raising Awareness ♥ Bulletin Board

CARDIAC RISK in the YOUNG Issue No. 24 March / April 2000 CRY SUBSCRIPTION AND / OR DONATION FORM Name............................................................................................... Address............................................................................................ Please use .....................................................................Post Code................... the enclosed FREE Telephone ........................................................ Date...................... POST envelope

Annual subscription for 6 bi-monthly updates - £3.00


MEET OUR REPRESENTATIVES IN SUSSEX - IT`S JENNY COLE I have been directly involved with CRY since 1997 two years after the sudden death of our 14 year old son Jeremy from ARVC. The suddenness and totality of his loss has had a devastating effect on our family and we know this is something that we will all have to live alongside the rest of our lives. Jenny & Nigel Cole seen here at The 999 Challenge

Some time after his death we contacted CRY who made us aware that we were not alone and also put us in touch with St Georges Medical School in London. We were shocked to find out after screening at the hospital that other members of our direct family were also affected with the same genetic condition and that this could have been picked up earlier if there had been a screening programme in existence. This might have saved the life of our son had his condition been detected earlier. CRY has been of enormous practical help and comfort to us as a family. We feel that a positive approach to screening as part of an on-going awareness programme of making the public and also the medical profession more familiar with the potential causes of sudden death in young persons and the symptoms to be on the look out for, could undoubtedly save lives. I have been involved directly with high profile fund-raising activities combined with publicising the activities of CRY in our local area and have also made many contacts and friends through out contacts with CRY. I look forward very much to helping CRY achieve its aims in the future.


NEWSLETTER March / April 2000 After a spell of brutal Arctic weather that froze the petals on our spring flowers the Millennium London Marathon was run on a beautiful soft sunny day that put a smile on the faces of competitors and spectators. CRY had 40 runners participating and vying for space with 33,000 others + a double decker bus, a team of Wombles a huge cake and a giant caterpillar. As always it was a privilege to be a witness to such a moving occasion and be part of the tidal wave of enthusiasm of the millions of supporters for those intrepid athletes that take part. Raising awareness of the potential for cardiac abnormalities in the young,with the donations of ECG machines to Hospitals and Doctors Surgeries, continues apace. In memory of Jeremy Cole an ECG machine was donated to the to A & E Department at Eastbourne District General Hospital where Consultant Cardiologist Mr Rowland Cottingham confirmed that the hospital had subsequently reviewed their practices in the A & E Department after Jeremy's death, and that as a result of this they had already referred on a young boy to Great Ormond Street where he had been confirmed as having a cardiac condition. The Andy Gard Memorial Fund have donated an ECG machine to Colchester Hospital Children's Ward where John Bick was requested to give a demonstration and training session to the nurses, which was very well received. The sister i/c the Children's Ward was surprised to learn about CRY and delighted to be tangentially involved in our campaign. Many thanks to all of you that are getting such terrific coverage in your local newspapers for CRY activities. Since our last Update it has again been a busy media time for CRY. Kathy Haffenden did an interview for The Mirror (see Raising Awareness) about the death of her son Justin which provoked a number of calls to the office; Collette Farragher did a TV interview on Midlands Today about the sudden Death from WPW of her son Curtis, which also featured our Chairman Dr Greg Whyte; and Paulette Smith did a TV interview on Harlech about the sudden death from Myocarditis of her son Christian, which included an interview with Terry Yorath about Daniel's sudden death and our Divisional Representative for Wales Maureen Ward's death of her son Caradoc, both of whom died suddenly from HCM. I hope that those of you who saw The Doctor's episode of Second Chance enjoyed it. Also "That's Esther" which focused on CRY's screening campaign featuring an interview with Terry Yorath, Professor McKenna, Dr Sanjay Sharma and Dr Greg Whyte, and detailing the tragic deaths of Jeremy Cole from ARVC and Laura Fox from SDS. Finally, an exciting bit of research news. Renowned health psychologist Professor Andrew Steptoe, will again be supervising Steven Cox in a new research project, this time into the psychological impact on students, of CRY's ECG Testing in schools. This is a crucial area of study and one I have been frequently challenged about. It is reassuring that, if approval is given, we will then be able to furnish the answers to some of the emotive questions that our ECG Testing programme provokes.


JULIE`S FANTASY INTERVIEW WITH

BIG BUG The Marathon`s only 12 legged entrant JULIE

Did you make friends with a Womble?

BIG BUG

Yes, I did. It was rather cuddly.

JULIE

Was this your first Marathon?

BIG BUG

Yes it certainly was.

JULIE

How did you feel at the start of the run?

BIG BUG

Nervous and excited - my legs were shivering and people were laughing and waving at me.

JULIE

Was it hot in there?

BIG BUG

Yes, Very!

JULIE

Can you run quicker with all those legs?

BIG BUG

No, because most of them are false.

JULIE

Were you attacked by any rhinos?

BIG BUG

No. They were very friendly.

JULIE

How did you feel when you saw the Finish Line?

BIG BUG

There is only one word to describe that - RELIEVED!

JULIE

How many blisters did you have?

BIG BUG

Too many to count.

JULIE

Where did you put your medal?

BIG BUG

Where everyone could see it.


Theme - Marathon

Photo-Call Why is this Big Bug in such a hurry? .. ... .. ... ...... ....!



MALPAS PARK PRIMARY SCHOOL Malpas Park Primary School in Newport Gwent, held a collection for CRY at their Harvest Festival and raised a fantastic £123.00 for Core Funding.

DAVID CHAPMAN MEMORIAL FUND Lynn Peacock, Carol Sinter and Alison Wagett walked The James Herriot Fun Run dressed as Wallace and Gromit. Lynn writes “we have all seen the effect that Sudden Death Syndrome has had upon the people close to us, and we wanted to help everybody in the same situation”. The girls had a lot of fun and raised a brilliant £93.24 in memory of David. STAGECOACH THEATRE ARTS Stagecoach Theatre Arts in Camberley, held 2 end of term presentation Plays. Lindy writes “ In many ways, we were grateful that we did not have to do it all in Camberley town centre. It was difficult enough in the confines of the school theatre! Anyway, it was great fun and the children, parents and any number of relatives all thoroughly enjoyed themselves and, if the truth were told, so did we and our teachers – despite the ever rising blood pressure!” It was definitely all worth it in the end as a fantastic £247.70 was raised for CRY Core Funding

WORDSEARCH

can you find these words?


JAN SMITH CRY`S ADMINISTRATOR REPORTS FROM Hello again from St George's As you will know from the last Update, I was away during part of March and am now in the last stages of catching up again. Further to last month's bulletin, you will be aware that CRY was looking to improve customer relations with Marquette Hellige, the supplier of our ECG Recorders. Progress has been made, and we are now in the final stages of setting up a contract with a new supplier. We will still use MAC 1200 ECG Recorders (these are definitely thought to be the best of their type) but the new contract includes better after-care and training and more reliable delivery times. We hope this will improve what has been at times, quite a sluggish service. I am sure you will appreciate the need to centralise purchasing of ECG Machines. A number of CRY contacts have sought information on buying ECG machines or other cardiac equipment using different sources, but unfortunately, at the current time this is not possible. Please note that CRY cannot be responsible for ECG recorders that have been secured through an independent venture. Ethical Approvals Western Isles Health Board - this is still progressing steadily, and we are now looking forward to hearing the outcome of their meeting scheduled for 8th May. Unfortunately the Ethics Committee did not meet in March as scheduled so we are still waiting for their second set of comments Highlands Health Board - encouraging - contact has been made with the Committee, and we are due a letter in the post, outlining six issues that they would like clarified. West Lothian - the Council is seeking further information from us in the light of the recent Scottish Executives Press Release on screening. Tenby - if anyone knows of a novel yet legal method to draw a response from the medical fraternity please get in touch, we are now chasing for one response! Essex - we have received relevant paperwork via Caroline Gard for Essex. To clarify this situation, Caroline Gard will be pursuing Ethical Approval for North Essex Health Authority, and this is currently the only Ethical Approval we are seeking in the East of England. The work load attached to these projects is considerable; as a national charity we need to establish ourselves in different parts


CARDIOLOGICAL SCIENCES ST GEORGES HOSPITAL MEDICAL SCHOOL of the UK. St George's I have recently received enquiries on screening/patient care procedures from families who have no history or current chest/heart problems, and thought it might be helpful to clarify what St George's is able to offer in the name of CRY. You can be seen at St George's for screening but your GP is unlikely to refer you on unless there is a genuine reason for concern. If you want screening and you have no specific chest problems, you can be seen privately. Here at St George's Professor McKenna runs a private clinic on a Monday, and his secretary, Ms Frances Manton will be able to advise of you costs and availability on (020) 8 725 5911. Improvements to Information Swapping Communication in an ever developing environment is always a bit of challenge! As the charity is growing, we are very much aware of how important it is to try and let people know of developments and amendments to policy and we are steadily working to improve the situation so please bear with us. CRY is now looking to develop what can best be described as a corporate identity - in simple terms, this means an easily identifiable "look". Shallow as it sounds, this will actually go a long way in securing interest in our cause, particularly from the corporate sector, who we have yet to target. Many companies have a budget for supporting charitable concerns, but the competition to receive funding is quite tough. We have to convince each Board member that shareholder money should come to us rather that be sent to the shareholder! With this in mind, it would enormously helpful if you would remember to provide Alison Cox with a draft of any publicity material that you are planning to use for a fundraising event. We can help with the wording, and advise on typeface and layout if needed. This way, we can gradually develop our "look" . It also helps us to keep up to speed with all your efforts too! Sports Cardiology The concept of a Sport Cardiology Unit was originally mooted about four years ago and our aim is to establish a unit which will offer sportsmen/women an opportunity to have a full cardiac evaluation. based on scientific evidence they will also receive advice on their training schedules, general health, and nutrition. The unit would be seen as a centre of excellence, and the research data would be invaluable to St George's in terms of publications and research projects. The first meeting to discuss the way forward recently took place, and although this is a long term project, we have now begun in earnest. I look forward to keeping you updated of developments. Please do get back to me on (020) 8 725 5098 if there is anything you wish to discuss relating to the above, or generally related to CRY. Kind regards from Jan.


MIKE FOSTER CRY`S The London Marathon. The London Marathon is one of our major fund-raising events. Over the last three years we have fielded an average of 50 entrants per year, in the approximate proportion of 75% Golden Bond, to 25% donated (public) place runners. Average gross income from this source is around ÂŁ35,000 pa. However, there are expenditures attached to this, the initial cost of 'Golden Bonds' is ÂŁ250.00, and the support infrastructure provided to our runners by CRY. How does it work? Each year we purchase a number of Golden Bond entries from London Marathon Ltd. These are then made available to members of CRY and the general public in exchange for a pledge to raise a guaranteed minimum amount of sponsorship. The amount of sponsorship asked for is set in consultation with Alison on a year by year basis and reflects the amount asked for by other charities offering the same kind of placements. In exchange for a signed pledge, we provide each runner with the relevant London Marathon Registration Documents, official London Marathon News Magazines and updates, a CRY T shirt or running vest, personalised posters and sponsorship forms, a CRY Runner Pin Badge and a Good Luck card in the week prior to the race. We also provide a similar level of support to our donated (public) place runners, but do not stipulate a minimum amount of sponsorship. Entrants may run for a nominated Memorial Fund or in favour of the CRY General Fund. We expect our runners to wear the CRY livery as much as possible in the lead up to the race and especially during the race. We usually allow a nominal three months for sponsorship to be collected, which, for accounting purposes, MUST be remitted direct to the CRY Marathon Co-ordinator. Remittances may be sent in singly or collectively as convenient to the runner. On receipt, all amounts are acknowledged, cheques recorded against the nominated fund, and receipts issued. They are then batched up and sent with covering letters to our Central Office to be officially recorded and banked - this usually happens on the day of receipt and certainly within two days of receipt. Following the designated collecting period, all sponsorship accounts are totalled up to determine the winners of our incentive awards (London Marathon Finishers watches) which are awarded to the top five male and top five female fund-raisers. Finally a financial report recording the details of all amounts received is prepared and submitted to the board of Trustees. This year, our field of Golden Bond runners is 31, which, due mainly to injuries sustained during training, is somewhat less than in previous years. The number of donated place runners (9) is also less than other years, and this I suspect is due to people either not being fully aware of our support infrastructure or because they have elected to use their sponsorship in support of CRY Golden Bond runner. However, this year we have sent out over 70 invitations and information packs, 120 personalised CRY posters, 320 personalised sponsorship forms, 22 badges, 42 Good Luck Cards, 35 CRY T shirts and 13 CRY running vests. Maureen Ward usually fields a strong team of runners from her area, with a core of regular runners, mainly local TA members, supporting the Caradoc James Memorial Fund. We also enjoy a lot of support from the Royal Navy, Fleet Air Arm and Royal Air Force through the Nigel Foster Memorial Fund. Caroline Gard's contingent from Essex have also been prolific fund-raisers with one of


PROJECTS MANAGER REPORTS Caroline's friends being awarded a special prize (donated by Canon Cameras), for being the top female (London Marathon) fund-raiser for CRY in 1999. Both Caroline and her husband, Peter, are running in this year's race. The winner of the Canon Camera for top male fund-raiser in 1999 was Rodger White who ran for Dominic O'Loughlin's Memorial Fund. Unfortunately, there is not sufficient space for me to reflect accolades on everyone who deserves it (they all do), so I will just say a sincere thank you on CRY's behalf to all of those who took part. Don't forget, the London Marathon is YOUR event - Golden Bond places are available to anyone who can commit to raising the required amount - to run for CRY or a nominated Memorial Fund. Contact me on 01329 231734 for further details. Unfortunately, only those runners who have registered with, and remit their sponsorship returns to the CRY Marathon Co-ordinator, can be formally recognised and become eligible for any CRY incentive awards.

General Fundraising Support. I am also able to offer fundraising support to anyone who requests it, in the form of customised posters and sponsor forms, etc. Previous fundraising events and assistance include: - The Great North Run; The Great North Walk; (various contacts from the North, including Steve Stainthorpe & Ivor Clyde; Tony Lucas and friends), Coast to Coast Cycle Ride (899 Naval Air Squadron), Island Treasure Hunt (12 Signals Unit Cyprus), 5 A Side Football Tournament (Sherralyn Rampton, Portsmouth); Duke of Edinburgh Award Scheme (a relative of Sherralyn's from Essex); Local Half Marathons (Bath: Portsmouth), Leeds Marathon (Julia Hartley), open letters of introduction for various purposes (sponsorship; raising awareness; etc). If I can be of help in your campaign, please contact me on 01329 231734 as early as possible. (It would also be nice to get feedback with respect to the successfulness of the campaign). General Administrative Support. This can mean anything to do with relieving pressure on the Central Office, and includes representing CRY at 'handover' ceremonies and talking to groups about CRY and its aims. Background activities include on going assistance with the development and preparation of internal procedures and documentation. I will shortly be preparing an inventory of fixed assets, which will entail identifying and recording the salient details and location of all equipment belonging to CRY, and will include everything from the Mobile Screening Van to the office pencil sharpener. We will also be analysing the cost effectiveness of all our operations including the London Marathon; CRY Commando Challenge; some aspects of the ECG Community Testing Programmes and 'ring fenced' funds.

General. My hours of work are somewhat flexible, and from time to time, I do have to leave the office to conduct CRY business elsewhere, (post, meeting contacts, business meetings, etc), but I am usually at my desk by 7:30 each morning and work through to 12:30. My afternoon sessions are usually between 13:30 and 17:00 and I can usually be contacted up until 22:00 daily and most weekends. My address is:331, Gosport Road, Fareham, Hants. PO16 0SZ. Telephone: Fax: e-mail:

01329 231734 (CRY). 01329 280379. foster1m@aol.com.


ANDY THOMPSON HAS RAISED ÂŁ3,060.13 IN MEMORY OF NIGEL FOSTER This was the third year I have run the London Marathon for CRY. I was fortunate in obtaining a public place, and had planned to run with my wife Helen, using a CRY Golden Bond. However, because of a viral infection, Helen was unable to run. Despite the vagaries of the winter weather and a job change, I was determined to score a marathon hatrick. The New Year began with about four short runs a week and progressed to long runs on Sunday. In the last five to six weeks of my training, the runs reached about 18 miles, which were really hard! Although the night before the 'big day' is intended to be quiet and relaxing, I had arranged to meet up with two of my service colleagues, Andy Dustan and Paul Brunell, both CRY runners, for a night on the town, and it almost happened. The weather was cold, wet and windy, so Saturday afternoon was spent in Covent Garden. In the evening we went to the Cinema in Liecester Square to East is East. The seats were covered in leopard skin and we all thought it must be a bit like sitting in Bet Lynch's lounge.

Andy seen here before setting off on the 899 Naval Air Squadron Coast to Coast cycle ride

After the show we thought it best to have a hot bath and turn in early so we could be fully rested for the big day. We repaired to our service accommodation, opposite the Tate Gallery, which was everything our service training had prepared us for. It was completely run down; the water was cold and brown; the rooms were cold and noisy and it was almost impossible to sleep. We decided to get up early and hop on a tube to Greenwich where we hoped we might get a cup of tea and a bite of something to boost our energy reserves. But Greenwich being Greenwich, and on a Sunday to boot, we ended up stuffing ourselves with jelly babies bought from a newsagents. We arrived at Blackheath at around 8:15 and it was already quite busy with lots of other runners milling around and trying not to show their nervousness. Andy Dustan and myself knew what to expect from previous occasions but this was Paul's first time and he was really soaking up the atmosphere. We all were! Whatever happened now, this was going to be a memorable day for many thousands of runners. The atmosphere continued to build as the three of us split up to find our allotted starting points. 09.30am - BANG - balloons released and we were off. It took me ten minutes to arrive at, and cross the start line. The first major milestone was the Cutty Sark. There were loads of cameras and a brilliant crowd shouting encouragement. The atmosphere was electric and invigorating, preparing us well for the trek to Tower Bridge. Unbelievably I didn't see the London Eye as I ran past it! After about 13 miles I was feeling really good, and for the next five or six miles into Docklands I still felt fine. In fact at my 13-14 mile point, the faster runners were on their way back from Canary Warf on their way to Tower Bridge, which would have been their 22-mile point. Between 17 and 20 miles it became really hard work. I was tired, taking on a lot of drink and wondering why I was there! After Tower Bridge I knew that I only had about 4 miles to go, and then it was there - Big Ben! So off I trotted to Parliament Square, Bird Cage walk and on to Buckingham Palace. Now there were thousands of spectators lining the route, shouting and cheering and egging us on. At the final mile I used my mobile to give Helen a call. Around the corner and into the Mall, the electronic clock, the finishing line and some refreshment. As I crossed the line the clock recorded 3hrs 43mins and 23 seconds - which I might add was the same time as Olympic Medallist Roger Black! Throughout the run I didn't see Paul and Andy, due to the different starting points, but we all completed the race within two minutes of each other. Although I have said that I will never do it again, I'm already looking into whether I can swim far enough to compete in the London Triathlon in October. Paul said that he will do another one, and Andy has already asked us both if we want to go out to Washington in September to do the US Marine Corp Marathon. So on the whole, the experience of running 26.2 miles with over 30,000 people, being beaten by a Womble and being shown on TV, was exhilarating for all three of us dedicated CRY runners.


£3,250.00 HAS BEEN RAISED IN MEMORY OF DAVID CROSS David died age 26 on 30.09.96 from Hypertrophic Cardiomyopathy. Since they found out about CRY his parents Jo, Charlie, & their supporters have been busy raising awareness and raising money for David`s Memorial Fund. More than £14,000 has been raised in a little over 3 years. The Cross`s have also had the first CRY Mobile Screening weekend in the region when 40 youngsters were tested for the condition - which marked the 3rd Anniversary of David`s death. Jo is no longer working and has taken this year out to concentrate on her CRY work

David at his graduation in 1992

Christmas Cards 1999 Thank you to Jo & Charlie Cross who donated £1,000 to cover printing costs of their Christmas Cards which enabled CRY to make a profit for the first time. After hearing about CRY`S North East Screening Programme Northern Electric and Gas have donated a brilliant £500.00 towards ECG testing.

After Jo wrote to Rob Andrew CRY`S Patron Rolls Royce has donated his (David`s old employer) their appearence fee through The Charitable Rotary Club of Donations Consett which Committee decided was a brilliant to award CRY a £250 in memory whopping £1,500.00 of David.


IN MEMORY OF NIGEL FOSTER NIGEL FOSTER MEMORIAL (RESEARCH) FELLOWSHIP.

Nigel seen here on detachment abroad

Up until this year, all funds raised for CRY in Nigel`s name have been contributed to the CRY General Fund. However, for the next three years, Mike & Rose (Nigel`s mum & dad) have agreed to help finance a research fellowship at the University of Wolverhampton, to carry out further research into the effect of exercise on cardiovascular function. The programme will be conducted under the auspices of Dr Greg Whyte, Head of Department of Sports Sciences, and it is hoped, will gain proactive support from elements of the Armed Forces. Mike & Rose Foster at MCS TCW Brize Norton for Nigel`s Tree Planting Ceremy


THE FLORA LONDON MARATHON 2000 The Flora London Marathon was held on Sunday 16th April. 40 CRY Runners took up the challenge, on what was a fantastic day. Below are some of our runners as they came past Buckingham Palace and headed down the home straight with the finish line in sight. There was plenty of encouragement for them from the Grandstand with several CRY supporters in attendance. Can you spot any of your CRY Runners?

Marion & Julie (Kids for CRY) Tanner looking out for Big Bug?

Maureen & Harry Ward with Tony


THE COLE FAMILY`S ECG MACHINE PRESENTATION In March 2000 a CRY ECG Machine was presented to The Accident and Emergency Department of Eastbourne District General Hospital in memory of Jeremy Cole. The ECG machine was accepted by Rowland Cottingham, Consultant to The A & E Department. The Coles write “We are both very pleased that the ECG machine will be sited in the A & E Department which is the first port of call for anyone of any age admitted suffering a cardiac related condition in the local area and we are sure that the plaque on the ECG machine will always be a timely reminder of why it has been given. We know that having an ECG machine placed in such a position must have made an impact on the hospital and the staff involved”. Tony Meier Vice Chairman of Eastbourne Hospitals (NHS) Trust

Jenny Cole (CRY`S Sussex Representative) and Rowland Cottingham (Consultant in Accident and Emergency Medicine at the Hospital) - it is in Rowland`s deptartment that the ECG machine has been placed

From L to R Jenny Cole, (at the very back Pat Guy from C & A Eastbourne), Chris Randall head of PR at The Eastbourne Hospitals Trust, A Sister from The A & E Dept at the Hospital, Dave Piercy Chairman of Eastbourne Old Town Boys FC, and Graham Erskine General Manager of The Eastbourne David Lloyd Leisure Centre Members of The ‘999’ Emergency Services teams who have raised so much money for CRY

Councillor Maurice Skilton (Chairman of the East Sussex County Council), Jenny Cole, Nigel Cole and Rowland Cottingham


BULLETIN BOARD NEW CRY GUIDELINES

IF ANYONE HAS ANY QUERIES ON ECG

BECAUSE OF THE GROWTH OF CRY, GUIDELINES FOR REPRESENTATIVES ARE BEING INTRODUCED WHICH WILL BE AVAILABLE ON REQUEST. CRY WILL BE INTRODUCING 8 U.K DIVISIONAL REPRESENTATIVES WHO WILL BE SUPPORTED BY COUNTY REPRESENTATIVES. OUR CRY ADMINISTRATOR JAN SMITH IS ALSO PRODUCING A MANUAL ON “GETTING INVOLVED WITH CRY” WHICH WE HOPE TO HAVE READY BY LATE SPRING 2000 CHRISTMAS CARDS 2000

PROGRAMMES OR MOBILE SCREENING ENQUIRIES PLEASE CONTACT JAN SMITH CRY`S ADMINISTRATOR AT ST GEORGES HOSPITAL MEDICAL SCHOOL ON 0208 725 5098 OR jsmith@sghms.ac.uk

OFFICE FURNITURE APPEAL

We have now moved into local offices and desperately need Office

WE ARE NOW PLANNING OUR Furniture. We would very CHRISTMAS CARD SELECTION much appreciate items FOR THIS YEAR. IF YOU HAVE A donated or at very CARD DESIGN YOU COULD special prices. DONATE TO CRY WE WOULD BE MOST GRATEFUL TO HEAR especially sound proofed FROM YOU. panels! PLEASE CONTACT CAROLINE GARD ON 01255 - 673598 OR VIA E MAIL carolinegard@hotmail.com

Please contact the CRY Office if you can help us in any way


BULLETIN BOARD RON PRESLEY We would like to send our best wishes to Ron who is shortly going into hospital for a heart by-pass operation, and also for a speedy recovery. Ron helped to start CRY 5 years ago and was CRY`S Chairman for 4 years QUESTIONS & ANSWERS If anyone has any questions that they would like answered in the Brochure then please fax them through to the office, if we have enough interest then a Questions and Answers Page will be included in the Update. (No medical queries please)

If you would like Tony to consider any item for Bulletin Board please fax details (including your item) through to him on 01372 279335

LATEST STATISTICS NOW REVEAL THAT NEARLY 1 IN 100 CHILDREN ARE BORN WITH A HEART DEFECT

Michelle Houghton has compiled a brilliant recipes book if anyone would like a copy please contact Irene Wickers on 01254 707895. They cost £1.00 and all proceeds to go to the Neil Wickers & David Staff Memorial Fund

Please bear in mind when organising fundraisings it would be brilliant if you can take photos of your great day. It would also be extremely useful to Tony if, when you write in to the office that you clearly state how much was raised, and by whom.

We have received a few requests for a copy of the ‘That`s Ester’ programme which was broadcast on 30.04.99. If you would like to borrow a copy then please send a self addressed padded Jiffy bag with stamps to the value of 66p to the Office.

E MAIL CONTACTS Keeley Ashley - Keeleyashley@aol.com Roy Ball - royandgillball@selcroftavenue.freeserve.co.uk Nigel & Jenny Cole - nigel1949@hotmail.com Jo & Charlie Cross - chascross@compuserve.com Mike Foster - foster1m@aol.com Caroline Gard - carolinegard@hotmail.com Harry Hindle - Capt.Harry@ntlworld.com Anne Jolly - jollyjon@netcomuk.co.uk Alan & Gloria Moss - mosses@cherrystonescottage.freeserve.co.uk Jan Smith - jsmith@sghms.ac.uk Adrian Woodhead - adrian@woodhead88.freeserve.co.uk

More and more people are using email as a fast and convenient way of communication. If you would like to be put on our CRY list, please email us with your details.


BULLETIN BOARD RING FENCED FUNDRAISING

Are you up for THE CRY COMMANDO CHALLENGE? This years CRY Commando Challenge will be on Saturday 7th October

Please remember that unless you notify us and get the necessary documentation and confirmation from the office for “ring fenced” fund raising before you start a fund raising venture all funds raised will be used for CRY Core Funding. Retrospective “ring fencing” is unfortunately just not possible. CRY can not be responsible for any “ring fenced” fund raising unless it has been authorised. Have you run in The Flora London Marathon for CRY? Did you raise at least £1,000? Would you like to be featured in our Update Brochure? Could you write an account of your run in 400-700 words? Can you supply a photo of yourself at the event? If you have answered ‘Yes’ to all of the above Tony would be very pleased to hear from you on 01372 276187

at Woodbury Common in Devon

If you would like to register your team please contact Mike Foster Co-ordinator of CRY Commando Challenge on 01329 231734 Teams need to be a minimum of 3 and a maximum of 5 people

SINEAD CHAPMAN We have heard that the surgery Sinead had to insert a defibrilator went very well, but she will be needing to return to the hospital for further treatment. We are all thinking of you Sinead, especially your friends on the CRY Counselling Course.

Anyone requiring CRY Posters or Sponsorship Forms please contact Mike Foster Projects Manager on 01329 231734 or via e-mail - address on opposite page



CRY`S Powerpoint Presentation is now available in either CD ROM or FLOPPY DISC formats. Ideal for fundraisings where a computer can be used to display information about CRY. Also featured is CRY`S Website so if any of you haven`t got access to the Internet and you would like to see the site now`s your chance! The cost is £10.00 inc P&P and can be obtained from the office

SECTION 64 GRANTS CRY was again unsuccessfull in it`s application for a Section 64 Grant for 1999. If anyone would like the list of successfull applicants please apply to the office

Luci’s Locket for CRY Luci has designed, especially for CRY, a superb sterling silver (or 9 carat gold) locket which opens to hold two photos. The silver chain can be any length up to a maximum of 20 inches, and the locket can be personalised with the addition of any initial. The cost, including post, packing & insurance is £75,00 and order forms are available from the office. Gold initial and clasp are available for the additional charge of £15.00. All lockets are made individually, hallmarked and engraved on the back with CRY and our ECG line. Maureen Ward CRY`s ECG “Consultant”! Maureen has offered to talk to anyone needing help with organising Mobile Screenings, ECG Testing , or Ethical Approval. You name it. She`s done it! Try her on 01834 843742

June Boulton is dedicating all her fundraising money for office furniture and equipment, in memory of her 17 year old son John, who died suddenly last year in his sleep of Sudden Adult Death Syndrome. She is doing a “Pubs & Clubs” circuit & would be grateful for Raffle prizes. If you have any ideas or prizes please contact her on 0151 287 2519

ESPECIAL THANKS TO NIGEL COLE FOR THE FANTASTIC AMOUNT OF TIME HE SPENT IN ORGANISING THE ORDERING & DELIVERY OF OUR WONDERFUL NEW VAN


Would you like to run in The London Marathon for CRY?

Liz Foy for Sarah Louise Williamson 1999

If so please contact Mike Foster on phone 01329 231734 fax 01329 280379


Turn static files into dynamic content formats.

Create a flipbook
Issuu converts static files into: digital portfolios, online yearbooks, online catalogs, digital photo albums and more. Sign up and create your flipbook.