As Deputy Editor of the CRY Update it is my responsibility to put together this newsletter, and ambition that you find all the CRY news, events and fundraising in these pages to be of interest.
I always endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to get in touch with me if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section.
I would appreciate hearing from you at conor@c-r-y.org.uk or on 01737 363222 if you have any feedback or comments regarding previous issues. Thank you for your help.
Alison Cox MBE Founder
Professor Mary Sheppard Consultant Cardiac Pathologist
Rebecca Zouvani Fundraising Manager
No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor. The Editor welcomes letters but reserve the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of Cardiac Risk in the Young (CRY). Articles pertaining to health-related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.
Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more.
Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised.
If you can supply a writeup or photos for any fundraising activities you have taken part in, please email conor@c-r-y.org.uk
For more details regarding the events shown on the cover, please turn to the corresponding page references below. Images are listed clockwise from top left:
1.
supporter Charlotte
took part in the Marathon Des Sables in memory of her mother, Josephine. Page 40
2. Mattfest, a festival celebrating the life of Matthew Cragg, was held to raise money for CRY. Page 35
3. A ‘thank you’ sculpture, commissioned by Pam Holmes in memory of her son, Nick, was unveiled at the National Memorial Arboretum. Page 4
4. Friends of Mark Law Hing Choy held their seventh annual charity day in his memory. Page 50
5. Exeter University Swimming Club held a varsity day to raise funds for CRY. Page 79
6. A runner takes part in the Brighton Marathon. Page 18
7. MP Mims Davies celebrates taking part in the Virgin Money London Marathon at our post-race reception. Page 19
8. Supporters turn out on Brighton beach to support runners taking part in the Brighton Marathon. Page 18
9. Friends and family of Jordan Burndred attend a charity ball night in support of CRY. Page 31
10. CRY Patron Bill Neely celebrates with fellow Virgin Money London Marathon runners. Page 19
11. CRY researchers, including Consultant Cardiac Pathologist Professor Mary Sheppard and CRY Consultant Cardioloigst Professor Sanjay
12.
13.
I first met Sam Wright when we started at the same secondary school at 11 years old. Before long we became good friends and I was constantly amazed and inspired by his enthusiasm for fun and adventure. He saw the best in everyone, in everything and had a strong passion for making others happy.
I can remember so clearly the last time I saw Sam. It was an extremely cold day in December and he was helping me sell cakes at a Christmas market. Just four days later, on Sunday 11th December, I received a phone call. The only words I remember hearing from his girlfriend were, “Basically… Sam died today”. He was 19 years old, studying to be a school teacher.
Over the next few days, we learnt that Sam had collapsed and died suddenly at home after going out for a run, and that there might have been something wrong with his heart. I was in denial, and for some reason thought there was a chance he could come back, but when his heart was taken away for tests, reality set in and that’s the first time I actually realised I would never see or speak to him again.
Upon hearing the news, a friend of my dads recommended that we contact CRY for some support. So Sam’s parents, Elaine and Kevin, decided to set up a memorial fund for donations in Sam’s memory. In just a few months over £3,000 had been raised, which is more than we ever could have imagined. It showed us just how much Sam was loved and missed by all who knew him, and how much impact his death had on everyone’s lives.
From this moment we continued fundraising by organising events, raffles and bucket collections, as well as raising awareness of SADS. Having raised a substantial amount of money, we made the decision to start using it to fund heart screening, to try and prevent what happened to Sam happening to anybody else.
My volunteering for CRY soon became more involved and I started representing them at events, giving speeches and collecting cheques. I’m so proud to call myself a representative of CRY and I try to live by Sam’s positive outlook on life and make the most of every opportunity.
Dr Steven Cox CRY Chief Executive
January 9
It was a pleasure to start off 2017 by meeting MSc Sports Cardiology students studying at St George’s University in London. I spent time with them recounting my experience of the evolution of our screening programme over the past 23 years, touching on significant events and what I’ve learned along the way. I look forward to seeing the important work these individuals produce in the coming years and have no doubt we’ll be working closely with many of them.
January 23
Leigh East Rugby Club produced a series of videos filmed at their heart screening day held on January 21 2017.
Bojan Johnson, fundraising coordinator, said that the response to the day had exceeded all her expectations: “We’ve done really well, it’s been organised and prepared for as much as we can do and it’s turned out to be a very
successful day.”
The club were inspired to put on a screening following the death of rugby league player Danny Jones, who collapsed and died whilst playing for the Keighley Cougars.
The collection of videos also includes an interview with club Chairman Dave Coyle, as well as a look at how a screening test is undertaken.
You can watch the series here: bit.ly/le23117
January 29
Here at the CRY office, we were touched to receive a kind message from supporter Pam Holmes telling us about a sculpture she had recently commissioned:
“When my son Nick died in March 2015 CRY provided support to the family and enabled my daughter and grandchildren to be screened at St. George’s Hospital, London, to detect any genetic undiagnosed heart condition. Thankfully they were all clear.
“As a ‘thank you’ and to show my appreciation of CRY and for the work they do, and also as a memorial for Nick,
I commissioned a sculpture at the National Memorial Arboretum which is a tranquil and peaceful place where other families can visit and remember their loved ones and in particular those who have been supported by CRY.”
Not only would I like to thank Pam from all of us at CRY for the lovely recognition, but also on behalf of all the families that will now be able to enjoy this beautiful piece of art.
January
Following Lord Storey’s call for automated external defibrillators (AEDs) to be available in all schools I published a short response on the PoliticsHome website.
CRY fully supports the widespread availability of AEDs in schools and other public places, as well as an increase in CPR and life saving skills training for young people.
However, I reiterated the reality that 80% of sudden arrhythmic deaths (SADS) happen at rest or during sleep. As such, cardiac screening is extremely important in detecting these hidden conditions before a situation arises where an AED is required.
A national strategy for the prevention of young sudden cardiac death requires a combination of AEDs, CPR, cardiac screening and general awareness of the symptoms of cardiac disease to be truly successful.
You can read my response in full here: bit.ly/ph30117
February
It was troubling, and slightly confusing, to see new estimates released by the British Heart Foundation (BHF) suggesting that as many as 620,000 people in the UK carry a faulty gene that puts them at high risk of heart disease and sudden death. This was a figure around 100,000 higher than previous estimates.
‘Guestimates’ predicting the risk of people dying suddenly from coronary heart disease OR sudden arrhythmic death syndrome (SADS) in young people are two very different things, with these figures only serving to paint a potentially overwhelming and terrifying picture. Whilst the impact of any sudden death is undeniably devastating, it is unusual for these ‘risks’ to be grouped together in this way, given that oftentimes the causes, circumstances, lifestyle
factors and ages of those affected are just not the same.
In response to the BHF I released a statement reiterating the tragic fact that every week in the UK 12 young, apparently fit and healthy people will die suddenly from a cardiac condition. I made clear that through our research we are proving that cases of young sudden cardiac deaths are not increasing, we are just getting better at identifying them. I also reiterated that cardiac screening to help detect cardiac conditions in 14-35 year olds is available right now through our screening programmes.
It’s disappointing to see a lack of awareness from the BHF in relation to the work and research that CRY and others are doing. However, we are determined to continue to raise awareness and push forward with all that we do in the knowledge that screenings, research and support are bringing real benefit to families up and down the country –more so than scaremongering figures ever will.
You can read the full statement here: bit.ly/cry2217bhf
February 2
I was invited to talk with David Delday of BBC Radio Orkney, following a two-day screening planned for the archipelago becoming fully booked in just one morning. David had a wide range of questions about screening and what we do at CRY.
I began, in response to being asked whether these screenings are enough given how quickly the places filled up, by explaining that we have thousands of people waiting for us to visit their part of the country and would love to do more screening if we could.
We touched on the importance of screening to communities hit by a tragic loss and how, without the hard work of volunteers and fundraisers, we wouldn’t be able to run the services we do.
David also asked me about the recently published British Heart Foundation figures suggesting 620,000 people were at risk from heart disease and sudden death due to a faulty gene. I restated my point that I found the grouping of risks confusing and not particularly conducive towards a sensible discussion.
You can listen to the full interview here: bit.ly/ror2217
February 8
During a routine screening, Brighton and Hove Albion F.C. defender Connor Goldson (pictured) was found to have an undiagnosed cardiac condition. I was interviewed by the city’s paper about the vital need for cardiac checks in all young footballers.
I explained that CRY wants to see screening throughout grass roots and Academy level football, in the hopes that any serious conditions are picked up when players are 14 or 15 – and can be subsequently managed - rather than when they’re signing for a club.
Connor has now undergone successful preventative surgery and is looking forward to returning to the pitch.
You can read to full article here: bit.ly/arg8217cg
February 10
Manchester radio station Key 103 broadcast a documentary that followed the stories of two families affected by young sudden cardiac deaths.
Catherine Silcock lost both her father and brother to undiagnosed cardiac conditions. She spoke of how, following her brother’s death, she found CRY after searching the internet, saying: “It just amazed me how frequently this happens.”
The family of Andrew Patterson (pictured, right), who died from a cardiac arrest in October 2015 whilst playing football, were also featured in the piece and were joined by the radio station at a screening organised in his memory.
Keira Kilgarrif, Andrew’s partner, told the reporter: “If something good can come out of it then it’s got to, hasn’t it? I think from the very beginning we wanted to see the positives in a very non-positive situation, and I think this [a
screening] is one of them; you know, to be able to help the local community.”
CRY Research Fellow Gherardo Finocchiaro spoke to Key103, alongside screening manager Peter Lewis, explaining the process of a screening and how, if any abnormalities are picked up, the details are passed onto the GP.
Catherine ended the segment with the powerful message: “It is a ripple effect, the more you hear about it and the more you realise this is really simple to understand, for that one hour out of your time it’s just so important.”
You can listen to the full segment here: bit.ly/key10217sg
In light of the British Heart Foundation data, I was invited to write a short comment piece for the Huffington Post. Covering much of what I had already laid out in my statement, the blog gave me a chance to explore the complexity around explaining research findings to the public in a way that is engaging and informative.
Being able to present a response to the BHF data on a website as popular as the Huffington Post was a great opportunity to raise further awareness of CRY’s belief that every young person should have the chance to have a cardiac screening. It also allowed me to further highlight the inaction of government policymakers in making this a reality.
You can read the full blog here: bit.ly/cry12217
CRY Representative Rich Fell (pictured, above) was interviewed by ITV North evening news following the death of James Moorfoot, an English Teacher at Hornsea School and Language College. James, 28, collapsed and died
suddenly whilst playing football. Rich’s son Josh, who was a student at the same school where James taught, also tragically collapsed and died playing football six years ago.
Rich spoke of his shock at hearing about James, saying: “We couldn’t believe it, finding out it was a teacher from Josh’s school. It just brings it all back.”
The Fell family has worked tirelessly to organise screening events in the local community since losing Josh, and reported that demand for screenings following James’s death seemed to ensure all available spaces were booked up much faster than usual.
Speaking to Victoria Whittam, Rich highlighted the importance of screenings and how raising awareness is encouraging more and more people to get screened.
You can watch the interview here: bit.ly/itv13217jm
February 18 & 19
Roger Maddams, whose son Jack died in his sleep seven years ago due to an undiagnosed cardiac condition, spoke to BBC News in Kent about his Football Fightback campaign. Run in conjunction with Kent FA, CRY and the Tonbridge Angels Football Club, the campaign has now raised over £33,000 to fund screenings.
Both Jack and another player, Junior Dian, 24 - who collapsed and died on the pitch in July 2015 - played for the Angels. The club has pledged to screen all of its players.
Speaking to the BBC about the initiative, Roger said: “I could name four footballers who will be playing today in Kent and in senior football - who are playing and enjoying their life - through having picked up issues on the screening and something’s been done about it.”
You can read the full article here: bit.ly/bbc18217jm
February 12
Nicola Burndred was interviewed by Signal1 radio and BBC Radio Stoke about a screening event organised in memory of her son Jordan (pictured), who died suddenly in October 2015.
Speaking to Signal1, Nicola explained how important these screening events are to her. “Obviously Jordan didn’t get the chance or the opportunity [to attend a screening], so I just like to help out other families that have the opportunity [to attend], and if it was that they picked up on something to do with the heart, the doctors could then refer them to the hospital and they could obviously get treated.”
BBC Radio Stoke joined Nicola on the day, where she described the ECG, echo and referral procedures. “The chances are, a lot of people pop in, and everything’s absolutely fine, you know – there might be just an odd few that we manage to refer to the hospital.”
Asked if there were any lives saved so far, Nicola responded: “The first screening day we did, we had a lady contact me after her daughter had a pacemaker fitted, so potentially that’s one life we’ve saved in Jordan’s memory.”
“Obviously this is not available on the NHS so this is a private screening session that we fund through the work that we do, but if they were to pick up anything you’d move straight into the NHS waiting list to get seen.”
You can listen to Nicola’s Signal1 interview here: bit.ly/ sgl12217jb
New international recommendations will pave the way for more routine cardiac screening
February 21
A ground-breaking paper featuring CRY Consultant Cardiologist Professor Sanjay Sharma (pictured) as a lead author was simultaneously published in two leading international heart journals: the Journal of the American College of Cardiology and the European Heart Journal.
Following 20 years of unique research, much of which has been funded by CRY, these new internationally recognised ECG criteria are likely to lead to significant reductions in the number of ‘false positives’ from ECG testing, confirming that this simple test is the most efficient way of identifying young athletes with undiagnosed cardiac conditions.
Professor Sharma said of the research: “The publication of these recommendations represents the culmination of two decades of research and numerous scientific meetings working towards the development of a clear guide to the proper evaluation of ECG abnormalities in athletes. For the first time ever, our studies also now represent an international consensus – which could also potentially be rolled out to all young people involved in grass roots sports, not just those playing at a professional level and with access to expert cardiologists via their clubs and training academies.”
I’m pleased to see that important research we’ve been involved in continues to get the widespread international recognition it deserves. We’re dedicated to making it clear that screening must be available to all young people and it is research like this that is pushing us ever closer to convincing those in power that it is a practical, costeffective and life-saving step.
The research has also been featured in the British Journal of Hospital Medicine.
website netdoctor.co.uk
February 28
Netdoctor, one of the leading health websites in the UK, published an article looking at hidden cardiac conditions in young people.
I was interviewed as part of the piece and it was a great opportunity to get word out about the work we do at CRY and the important of cardiac screening.
You can read the full article here: bit.ly/nd28217cry
March 17
Many of you have been writing to your local MPs as part of our ‘pledge to save young lives’ campaign.
Whilst we’ve heard from lots of you reporting positive responses from your MPs – we now have over 40 MPs signed up – we’ve also had requests from supporters asking how to respond to some of the slightly less supportive replies that have been received. Many of these state that the government has already invested £1,000,000 to fund AEDs; the NIHR is already funding genetics research in this area; and the National Screening Committee have said screening is not recommended.
If this is the type of response you have received, you could reply by clarifying that this commitment is not enough when there are 12 young sudden deaths every week in the UK.
The reason we’re asking MPs to support a National Strategy for the Prevention of YSCD is because we believe this is the only way the government (and its advisors) will be forced to recognise that current policy is based on flawed statistics. The Office of National Statistics (ONS) reported only 31 young sudden cardiac deaths in 2014 –data that we know to be factually incorrect. This underreporting of young sudden cardiac deaths has led to unhelpful, misleading and hurtful terminology in the National Screening Committee’s most recent review, stating that the incidence of YSCD is ‘rare’ and the risks ‘tiny’.
A National Strategy is therefore so important, as it provides an opportunity to officially acknowledge the scale and impact of the 12 young sudden cardiac deaths every week, as well as acknowledge that much more needs to be done to prevent these tragedies occurring.
We will be arranging a meeting later in the year to address the incidence of young sudden cardiac death, which every MP who has pledged to support our National Strategy will be invited to attend.
The government needs to be presented with correct statistics when reviewing their policy on the prevention of young sudden cardiac death and the UK needs a National Strategy to ensure the guidelines and policies to prevent young sudden cardiac death are based on consistent evidence.
For more information on how to involve your MP and an updated list of those MPs who have signed the pledge go to www.c-r-y.org.uk/my-pledge
March 28
New research conducted by a number of CRY researchers, including CRY Research Fellow Dr Gherardo Finocchiaro (pictured), has been published in the Journal of the American College of Cardiology. The study describes the clinical and pathological features of sudden cardiac death cases in individuals with pre-existing diagnoses of Wolff-ParkinsonWhite syndrome.
April 6
A contingent of CRY representatives attended the European Society of Cardiology’s EuroPrevent 2017 conference. Held in Malaga, Spain, the conference is an excellent opportunity to learn from colleagues across Europe as well as to share findings and research we’ve been conducting at CRY.
This year saw six CRY research related presentations. We also had a great amount of interest in our stand, reinforcing just how far our reputation reaches across the international cardiology community.
April 9
20 CRY runners joined more than 12,000 other competitors down on the South Coast for the seventh annual Brighton Marathon. It was a beautiful day with temperatures reaching 21 degrees – perfect for an ice cream on the beach, but slightly more challenging for a 26.2 mile run! Many thanks to all the runners, and supporters, for their fantastic efforts.
You can read more about the day on page 18.
April 10
Karen Campbell was interviewed by two radio stations about losing her son, James, and her subsequent work with CRY. James died of an undiagnosed cardiac condition whilst on a volunteering trip with friends.
Ever since, Karen has worked tirelessly to raise awareness and bring screenings to her local community, including a screening weekend held at Macmillan Academy, the college James (pictured) attended.
In the run up to the Macmillan Academy screening Karen spoke to Julie Donaldson of Zetland FM, raising awareness of James’s story, as well as encouraging young people to get screened. She also spoke of her involvement with CRY and how her work with us has helped in some small way: “Through doing what I do with CRY to raise awareness, that’s my way of coping, and you start to come to terms with this thing that you sometimes think you’re never going to get to talk about.”
Adam Clarkson of BBC Radio Tees joined Karen at Macmillan Academy, where over 200 young people were expected to be seen across the two days. Karen explained how she’s been fighting to make sure other people around the same age as James, and their families, won’t have to go through what happened to her family, telling Adam “because it shouldn’t, it’s quite that simple.”
Also at the Academy was screening manager Peter Lewis, who ran through what a quick, painless and easy process it is to undergo cardiac screening.
You can listen to Karen’s Zetland FM interview here: bit.ly/ zfm10417jc
events from occurring.
Our discussion focussed on the complexity of getting government to listen to ideas for new policy and the 20 or so years it can take for an initiative to make its way into legislation. I stressed the importance of the role charitable organisations such as CRY currently play in raising awareness of young sudden cardiac death.
Speaking about why she wanted to make the series, Gem said: “There are thousands of young people out there that are not aware that they have severe heart conditions. Whether these conditions be arrhythmias, disorders or hereditary, they can result in early deaths. As a sufferer of LQT syndrome, and a broadcast journalist, I felt it was time to get this message out there; to explore the undiagnosed, the need for screening, and the need for defibrillators. Time is short and life is precious. It is crucial that this message is told to ‘Save the Broken Hearts.’”
Also featured in the piece were Baroness Tanni Grey-Thompson and Professor Clifford Garratt of the Manchester Heart Centre.
You can watch the series here: bit.ly/yt12417cry
Alison and Rob Howells speak to Redshift Radio about their daughter, Ceri
April 20
Alison and Rob Howells spoke to Redshift Radio’s Charities Today programme about their ‘CRY for Ceri Abigail’ campaign, in memory of their daughter, Ceri (pictured), who died suddenly in March 2014.
Ceri died shortly after complaining of chronic headaches and dizziness, both of which were attributed by doctors to fatigue. She was found by her husband, whom she had married only nine months before.
Alison made a point within the interview to highlight the positive benefits of the continued and growing awareness around cardiac screenings.
April 12
I sat down with journalist Gem O’Reilly to be interviewed for her documentary series ‘Save the Broken Hearts’, which explores the issues around young sudden cardiac death and what is being done to prevent such tragic
She recounted meeting a girl who attends the college where she works who had a specialist defibrillator fitted as a direct result of attending a screening the previous year: “I’ve now met her at college… and she just said ‘I’m so grateful to all of you that are fundraising like this because I wouldn’t be alive now.’”
Alison and Rob spoke at length about all the fantastic fundraising and events that have been taking place in memory of Ceri. It is a wonderful interview, full of lovely stories about Ceri and what a great person she was.
You can listen to the interview here: bit.ly/rsr12417ch
April 23
It was another fantastic event this year in central London, where over 100 runners took part in the world famous marathon in support of CRY.
Amongst our many brilliant participants were CRY Patron Bill Neely (pictured, right) and Mims Davies MP. Bill was team CRY’s fastest runner with a very impressive time of three hours, eleven minutes and 13 seconds!
Thank you to all the runners who took part for CRY, and also to our invaluable supporters who turned out to offer motivation along the course and congratulations back at the hotel reception.
For pictures from the day, as well as a full list of runners, turn to page 19
April 28
Anna King of BBC Radio Gloucestershire invited CRY Representatives Linda and Geoff Goodwin onto her show to discuss their son, Ashley, and the importance of screening. Ashley (pictured) died suddenly from undiagnosed hypertrophic cardiomyopathy 10 years ago.
Linda, who is also a CRY Bereavement Supporter, spoke candidly about what it was like to lose Ashley, telling Anna, “Quite honestly, I just couldn’t believe it. He appeared fine, healthy. So, you just don’t believe it, and it takes a long,
long time for it to sink in, the realisation. Well, you just can’t put it into words.”
The Goodwins were speaking to help raise awareness of a screening event they were planning in Ashley’s memory, taking place in July: “We just want to spread the word, especially about screening.”
Geoff also sought to counter a common misconception that our screenings and awareness can be seen as scaremongering, arguing: “But, it’s not scaremongering if women go for breast cancer screening, that’s now accepted as the norm: it saves lives. And mandatory [cardiac] screening would undoubtedly save lives.”
April 29
We passed a fantastic milestone over the last weekend of April, with Charlotte Oliver becoming our 10,000th person to be screened in the North West.
The screening took place in Altrincham at an event funded by the family of Chloe Waddell. Chloe – a young Olympic swimming hopeful – tragically died in her sleep in February 2013, aged just 16.
The North West is where we started screening, so it’s fitting we can use this event to highlight that screening is the most effective way we have of saving young lives from these cruel and indiscriminate heart conditions.
You can read the full press release here: bit.ly/cry28417
By the summer of 1998
Adrian Woodhead, a quiet shy young man, had received a response from several of the then 659 sitting MPs to whom he had sent a handwritten letter. These letters told of the young sudden cardiac death of his wife, Sarah, who had collapsed and died in his arms just before Christmas. Her dream in life was to have a family, and it was at first assumed her symptoms of nausea and fainting were due to pregnancy. She was 28 and dressing to visit the GP, who wanted to test her for epilepsy, when she died of Arrythmic Right Ventricular Cardiomyopathy (ARVC). Adrian wanted these MPs to know that not only was cardiomyopathy treatable if diagnosed, but also genetic and subsequently other family members were at risk. Sarah’s death was preventable - he had learnt that her father had also died of ARVC in his 30s. He wanted to raise awareness with MPs of CRY’s work. In the depths of the most profound despair he wanted to get something done.
Five years later, Jeff Morland, Chairman of Labour Party North, contacted me because his son Levon had suddenly died when out having a beer with his mates. Since he was 12 Levon had been treated for a heart condition called Wolff-ParkinsonWhite syndrome (WPW), with his cardiologist telling him that his condition was not something to worry about and would just prove to be “a nuisance”. Jeff urged me to contact two friends of his, Kevan Jones and Dari Taylor, both MPs, to raise awareness in the House of Commons.
As a result, we hosted a Parliamentary Reception which led to the instigation
of CRY’s All Party Parliamentary Group (APPG). Kevan joined as Chairman, and it was launched in The House of Commons by CRY’s new Patron Sir Ian Botham. Dari had also successfully applied for a Private Members’ Bill. Suddenly we were moving forward – and fast.
I had been advised that the number of MPs that attended Parliamentary Receptions usually averaged ten. So many MPs came storming down to CRY’s Parliamentary Reception that year it broke all records and meant I had to request them to move further into the room due to the queue of MPs waiting outside to get in! MPs speaking on the night highlighted the importance of the impending bill, and the young lives that would be saved if the issue was formally addressed.
Mailshots appealing to CRY families to contact Parliament in support of Dari’s bill resulted in hundreds of letters arriving on the desks of the Department of Health, MPs and even the Prime Minister. The campaign had produced 80 press articles in eight weeks and, crucially, softened the previously intransigent position taken by the Department of Health to the point that they ultimately agreed that a gap in service provision had been identified through Dari’s Bill.
The deluge of letters from bereaved families successfully raised awareness with MPs and the Government’s insistence that young sudden cardiac death was very rare, with only one death a week, was quickly recognised as being hopelessly incorrect. Support for Dari’s Private Members’ Bill, Cardiac Risk in the Young (Screening) Bill, quickly grew.
In the run up to the bill being heard, I was cautioned by several MPs to not expect to achieve anything apart from raising some awareness. Only 11% of Private Members’ Bills heard each year are successful in being passed into law. However, they totally underestimated the cacophony of protest that was generated by our bereaved families, who were insisting something must be done about young sudden cardiac death, and this was the chance to get it addressed.
Dari prepared carefully for her debate, selecting MPs from various constituencies around the country to speak eloquently on behalf of their bereaved constituents. In conclusion, the Health Minister announced the formation of an expert group on Arrhythmia and Sudden Cardiac Death that would include CRY in the consultation process for the formation of a new chapter in the National Service Framework. Speaking afterward, Dari stated: “ …nearly 100 Members of Parliament from nearly all parties offered their support… a substantial majority of whom were MPs who had agreed to support my bill because they had been asked to by their constituents – invariably members of CRY.”
The expert group was given five years to scrutinise every aspect of what could and would be done and began its work in 2005, concluding in 2010.
It seemed a sensible time to support these ‘formalities’ by capitalising on the interest raised, and newspaper coverage received, by having our first national raising awareness campaign, inviting MPs to their local launch to meet their constituents. We produced a collection of postcards featuring the face, name and age of eight young people who had died in each of the 12 regions identified – it was hard hitting imagery.
We visited every region during the time of the expert group, impressing that this was happening to at least eight - not one - a week, whilst also stressing it was not as rare as thought and highlighting the link connecting family members. Thousands of postcards were requested, with many MPs saying they had received hundreds and yes, they got the message and would definitely be supporting CRY. It provoked a rush of interested MPs joining our All Party Parliamentary Group, to the delight of Chairman Kevan.
The introduction of Chapter Eight on Arrythmias and Sudden Cardiac Death into the National Health Service Framework has made a significant difference to alerting GPs and cardiologists to young sudden cardiac death. Furthermore, it established the procedure where family members would be tested at specialist centres after a tragedy, or when there was a diagnosis of an inherited cardiac condition – often referred to as “family screening” and/or “cascade screening”. These dangerous conditions started being taken very seriously and were no longer dismissed. CRY’s Professor Sharma became a world leader on the research being done to prevent young sudden cardiac deaths.
However, the impact of these tragedies on those affected has never been fully recognised. The effect on family, relatives and friends of a young apparently fit and healthy person dying suddenly leaves not just an irreplaceable loss, but a deep shock with far reaching consequences.
If you have been affected we would ask you to consider contacting your constituency MP – and to perhaps ask others to contact them as well. There is more information on CRY’s current campaign for all MPs to sign up and support a national strategy for the prevention of young
sudden cardiac death at www.c-r-y.org.uk/my-pledge On this page you can see how to contact your MP as well as find out why a national strategy is so important. Furthermore, utilising the power of social media to raise awareness is ensuring more and more people are hearing about the work we do and the importance of a national screening programme.
If you have never contacted your MP before, the thought of approaching them to raise awareness of CRY might present a daunting prospect. However, having the initiative to contact them will instil a curiosity and hearing your story will make them aware of young sudden cardiac death and the suffering it induces for those left behind.
Saving cuttings from newspapers to show them can have an impact.
Highlighting our statistics: how much we support the NHS in what we do by training doctors as experts; providing state of the art medical equipment for the CRY Inherited Cardiac Conditions screening clinic at St George’s; and Consultant Cardiac Pathologist Professor Mary Sheppard, her team and the CRY Centre for Cardiac Pathology at St George’s Hospital.
MPs matter as that is the way our democracy can urge change. But MPs represent their constituents who choose who they want to represent them. They might be in a powerful position but they’re ultimately accountable to you!
Remember that perseverance is persuasive! MPs will take note if you are persistent and do not give up.
Every week I speak to members of bereaved families who tell me of their tragedy and that they had never heard of young sudden cardiac death before. We are trying to not only raise awareness so that EVERYONE has heard of young sudden cardiac death, recognise symptoms when they exist, and what can be done to prevent it, but also to emphasise the terrible impact of these tragedies and how widely felt the ramifications are and for how long.
The booklet, compiled by CRY Founder and former bereavement counsellor, Alison Cox MBE, features ten chapters from women who recount and talk through their personal experience of suddenly losing their son or daughter to a previously undiagnosed heart condition.
CRY has developed this booklet alongside others in the charity’s ‘grief series’, knowing that bereaved mothers – and parents – often find most solace and support from others who have been through a similar experience.
Speaking about a mother’s grief, Alison said, “The impact on a mother of her child’s death is well documented but it is now properly recognised that they cannot be ‘replaced’ by mother having another baby, ‘time does NOT heal’ nor will mother one day ‘move on.’ Family members all grieve differently but in a battle to help her partner, her other children or her own parents, a mum can become totally swamped by the shared mourning of their intolerable loss. Yet, craving to hear or say her dead child’s name to keep their memory alive can result in her subconsciously excluding the needs of other family members.”
You can read the booklet online at www.mumsgrief.org.uk
A CD has been released in memory of Adrian Badon. Speaking about the CD, Adrian’s mother said:
“The CD is written and sung by the brilliant Olivia Bedford in loving memory of my wonderful son Adrian Badon, who died of a sudden electrical charge to his heart on 30th June 2014. He would have been 29 years of age on the 8th February this year, so in memory of his birthday 20% of the money raised will go to CRY - an organisation whose aim it is to prevent this happening to others, raise awareness and to provide emotional support to families. It costs £3.99 plus £1 postage and packing. Support a young up-coming star and CRY in one go.”
Anybody interested in purchasing a copy should e-mail gmarjulie@icloud.com
We’ve launched a powerful but pragmatic new YouTube channel to help support the growing numbers of young people who – thanks to greater awareness and early identification – are learning to live with the shock diagnosis of a potentially fatal heart condition.
Aimed at members of the myheart network, the YouTube channel includes answers to a number of frequently asked questions from members of the community by myheart cardiologist Dr Michael Papadakis. Videos sent in by members are also provided to help others, through the sharing of experiences of being diagnosed or undergoing certain tests and procedures.
You can visit the channel here: bit.ly/myheartchannel
At our regular CRY screening days
1,399 young people were screened. Screening days funded by the Northern Ireland Fund were held at Ballyclare High School and Tír na nÓg GAC. Screening days held at our National Screening Centre at St George’s Hospital, London, were funded through donations from the 2015 and 2016 BGC charity days, in memory of Jack Thompson.
Sports Screenings included: RFL Championship Clubs in Workington and Rochdale; Harpenden Colts FC; The Royal Ballet School; Huddersfield Giants RFL; Wakefield and Castleford RFL; Salford Red Devils RFL; Middlesex County Cricket Club Academy; British Cycling ‘Dan’s Trust Screening’; RFL England Youth Medicals; Hull FC RFL; Tonbridge Angels FC (Funded by Football Fightback); RFU U16s/U17s/ U18s and England Counties U18s; Pegasus FC; Bisham Abbey English Institute of Sport and Newark Rowing Club. A total of 1,663 athletes were screened
At 46 family memorial screenings
6,523 people were screened. These were held in memory of: Tom Clabburn and Claire Prosser (London), Michael Land (Knottingly), Dave Bramwell (Egham), Andrew Patterson (Horwich), Isabelle Tudisca (Woodford Green), Josh Merrick (Manchester), Adam Lewis (Leigh), Dean Mason (Whitland), Lee Smith (Rotherham), Mark Hancock (Stoke-On-Trent), Sara Pilkington (Manchester), Gemma Quew (Isle of Wight), Andrew Stevens (Isle of Wight), Joe Parkinson (Prescot), Alex Brown (Wolverhampton), Shane Stanley (Poole), Adam Donnelly (Chislehurst), Adam Lewis (Warrington and Leigh), Jack Thomas (Oakdale), Pardeep Nagra (Wolverhampton), David Moss (StokeOn-Trent), Jordan Burndred (Stoke-On-
Trent), Kevin Paterson (Birmingham), Matthew Hesmondhalgh (Lancashire), Owen Morris (Cardiff), Rory Embling (West Yorkshire), Joseph Halliwell (Stockport), Martyn Luckett (Bude), Andrew Parr (Preston), Zoe Teale (Stourbridge and Birmingham), Gregg Shoults (Sittingbourne), Chloe Waddell (Altrincham), James Campbell (Middlesbrough), Philip Standing (Romsey), Bethany Mycroft (Clowne), Daniel Hughes (Derby), Adam Lewis (Warrington), John Marshall (Ormskirk), David Brown (Eastleigh), Nathan Butler (Newcastle-underLyme), Adam Green (Market Drayton), Alan Bain (Orkney), and Aaron Dixon (Hartford and Bury – Bury was funded by the JD Foundation).
A total of 788 young people were screened at six school screenings, which were held at Sedbergh School, Cumbria; Eton College, Windsor; Bishop’s Stortford College, Hertfordshire; Reed’s School, Surrey; Millfield School, Somerset and Royal Grammar School, Surrey.
At two further screenings 402 people were screened. These were held at Marks and Spencer, Lisburn, Northern Ireland and Loch Leven Community Campus, Kinross.
The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart.
Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire.
If a more detailed image is needed (about 5–10% of individuals), an echocardiogram can be taken –this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform.
The screening programme is under the aegis of Professor Sanjay Sharma.
“Please pass on our appreciation to the CRY Screening team who came to Mountbatten School, Romsey, on Friday. They were fantastic. So efficient and friendly and they managed to screen 108 individuals, which was brilliant. Caroline Noakes MP popped in to give her support.”
Sue Fisher and Sue Kiley
By Professor Mary Sheppard
Professor Mary Sheppard, Consultant Cardiac Pathologist
Eleni Konstantinou, Laboratory Technician Khari Edwards, Laboratory Technician
We had 77 cases from January to April 2017. This is maintaing our numbers over four years.
There is a very good turn around time for issuing a report to the coroner, with an average of 11 days in 2017.
We also obtained consent to retain tissues for research in 50% of the cases referred to us, which is valuable for forming a biobank for research into the causes of sudden cardiac death.
We are also increasingly getting splenic tissue material which is valuable for genetic investigation of the sudden cardiac deaths.
We have established the unit as a national and international training centre for cardiac pathologists and forensic pathologists:
• Dr Victoria Lee, a forensic pathologist from Kualar Lumpur, Malaysia, visited from March to May 2017 for a training programme.
• Dr Lillian Edwards, from Basildon, visits the department weekly.
• We were successful in getting an academic clinical fellow from the London deanery in pathology training. Dr Joseph Westaby, a pathology trainee, will spend 30% of his time doing research with Professor Sheppard. This is a major achievement that recognises the excellence of the Centre for Cardiac Pathology in training in cardiovascular pathology and research.
• Professor Sebastian Lucas from St Thomas’s Hospital comes for the Centre’s opinion on complex autopsy cases of cardiac disease
• The centre is also collaborating with Professor Robert Anderson, noted cardiac anatomist, and Dr Bjarke Jensen, from Amsterdam, on research into congenital cardiac anomalies which can cause sudden cardiac death.
• Lecture on challenges and cardiomyopathy at the south London inherited cardiac conditions meeting, St George’s medical school.
• Lecture on genetic cardiac disease on MSC in forensic science. Institute of Forensic Medicine at St Mary’s medical school, London.
• Lecture on aortic disease at London aortopathy group meeting, St George’s medical school, London.
• Attended seminar and research presentations, Society for cardiovascular pathology, San Antonio, Texas.
• Two poster presentations at the United States and Canadian Academy of pathology, San Antonio, Texas.
• Workshop meeting on sudden cardiac death, Society for cardiovascular pathology, San Antonio, Texas.
• Invited to participate in Council on Basic Cardiovascular Sciences, European Society of Cardiology, Heart House, Nice.
• Lecturer on sudden cardiac death to East Cambridge deanery trainee day, Essex.
• Invited lecturer at the European Association of Preventive Cardiology in Malaga, Spain.
• Invited lecturer on cardiac genetics, MSc in Genetics, St George’s Medical School, London.
• Lecturer on cardiology section training day, Royal Society of Medicine, London.
Professor Sheppard attended one inquest in Bristol.
Research that has been funded and supported by CRY was well represented at the EuroPrevent 2017 conference, held in Malaga, Spain.
The conference, organised by the European Association of Preventative Cardiology, brings together leading clinicians and scientists from across the world and is a key international event for cardiovascular disease prevention.
This year saw a number of CRY related clinicians and researchers present their work, including CRY Consultant Cardiologist Professor Sanjay Sharma presenting the new International ECG criteria for athletes.
Amongst other presentations by CRY Research Fellows were:
• The mixed race athlete’s ECG: Not so black and white
• Ef fect of ethnicity, age, gender and sporting discipline on an athlete’s ECG
• Cost effective preparticipation screening in athletes: is it feasible?
CRY Chief Executive, Dr Steven Cox, spoke to CRY Consultant Cardiologist Professor Sanjay Sharma (pictured) at the British Cardiology Society’s annual conference,
asking him about new international ECG guidelines published in January. These guidelines were informed by over 20 years’ worth of CRY research and represent an international consensus for ECG interpretation in athletes, providing expert opinion-based recommendations.
Professor Sharma told Dr Cox: “One of the most feared complications of exercise is sudden cardiac death. These deaths are rare, but they’re very visible, and this is because young people are supposed to be healthy and supposed to make it to the age of 83.”
ECGs are an effective way of identifying a large number of individuals at risk of dying from inherited congenital abnormalities that affect the heart muscle. However, in athletes, some of the structural and functional changes that occur in their hearts - due to their intensive training - can sometimes look similar to abnormalities present in non-athletic individuals when their ECG is being interpreted, leading to false positives.
Speaking about the current guidelines, Professor Sharma explained: “Historically, the European Society of Cardiology 2010 guidelines have been used - and have been very laudable - but have false positive rates ranging between 9% and 22%. That’s largely because the data are derived from a non-select group of 32,000 white individuals and do not take into account people who exercise
very intensively or athletes of ethnicities outside the Caucasian form.”
The new guidelines, The Seattle Criteria, have taken into account variations across ethnicities, helping those interpreting ECGs to assess whether an athlete’s heart is performing within an expected range or not. This will have a marked effect on lowering false-positive rates; ensuring athletes are not given incorrect diagnoses that could negatively impact their sporting careers. These guidelines have also sought to further group ECG features to allow for more consistent categorisation and classification. Professor Sharma explained how research conducted by several Cardiac Risk in the Young fellows has allowed for ECG features to now be stratified across green, amber or red zones, affording a greater degree of specificity and accuracy in deciding which athletes require further investigation and testing, also taking into account any symptoms or familial history.
Initial use of these guidelines has been encouraging, with Professor Sharma commenting: “These refined criteria, sometimes called the ‘CRYteria’, really showed a high specificity without compromising sensitivity.” Their success and internationally recognised importance led to them being published jointly in the European Heart Journal and the Journal of the American College of Cardiology in February this year.
This year alone, CRY will be providing over £800,000 of grants, which includes full funding for eight CRY Research Fellows. This ensures that we are truly informing the conversation about young sudden cardiac death and helping to make it faster, cheaper and easier to screen for conditions that can so cruelly rob a young person of their life.
You can watch a video of Professor Sharma explaining the criteria at: bit.ly/ cry7617ss
20 CRY runners took part in the eighth Brighton Marathon on Sunday 9 April 2017, lending their kind support and amazing fundraising efforts to another successful year on the south coast.
With temperatures reaching a balmy 21 degrees, thousands of supporters flocked to the seafront, creating an incredible atmosphere. It was great to see so many CRY supporters in the crowd, with their CRY t-shirts and clappers, cheering on the team as they made their way through the city.
Volunteer Malcolm Terry was at the finish line to provide congratulations to the team for their incredible achievement, whilst back at the CRY stand much deserved sports massages were kindly provided by Spencer Hannon.
With fish and chips in hand, spectators watched from the Beach Village as Stuart Hawkes became the first British winner of the marathon with a time of two hours 27 minutes and 36 seconds. Barry Holcombe was the first CRY runner to arrive at the stand with an amazing finishing time of three hours 27 minutes and 32 seconds.
It was a pleasure for the CRY team to meet all of our runners as well as the families and friends who came along to support them.
A huge thanks to the team for doing so well, both in the run and their brilliant fundraising, and we look forward to seeing even more members of team CRY along the seafront in 2018.
CRY runners were:
Michael Ainsworth (In memory of Jocelyn Marlowe Ainsworth) | Michelle Ashwell | Sam Barnes (In memory of Alex Hubbard) | Dr Sanjay Bhate (In memory of Aashi Sinha) | Emily Capay (In memory of Miriam Kate Lee) | Patrick Cockram | Jennifer Cox and Darren Tristram (In memory of Benji Percival) | Karen Daniels (In memory of Matthew Daniels) | Collin Fox | Isobel Giles (In memory of Sara Pilkington)|Barry Holcombe (In memory of Andrew Holcombe) | Jason Mitchell (In memory of Jake Wood) | Richard Ponsford (In memory of James David Colman) | Andrew Quew (In memory of Gemma Louise Quew) | Andrew Siveter (In memory of Sian Roger) | Katie Swaysland (In memory of Nicola Swaysland) | Natasha Symonds | Rebecca Waller (In memory of Ceri Abigail Palmer) | Laura Westwell (In memory of Robert Worboys)
The next Brighton Marathon will take place on Sunday 15 April 2018. Please contact events@c-r-y.org.uk for further information.
Sunday 23 April saw another brilliant turn out for CRY at the Virgin Money London Marathon.
107 runners supported us, running the 26.2 mile course through the centre of London.
Running his eighth consecutive race was CRY Patron Bill Neely, Chief Global Correspondent for NBC. Bill was also CRY’s fastest runner, finishing in an impressive 3 hours 11 minutes and 13 seconds.
A record 16 MPs took part in this year’s marathon. We were proud to have Mims Davies, MP for Eastleigh, running to raise awareness for us.
The route, which played host to over 40,000 runners, took in many of the major sights of the city, winding its way through Greenwich, Canary Wharf, The City and finishing on The Mall.
This year also saw 39 Guinness World Records broken, including for the fastest marathon dressed as an elf (2:58:26), crustacean (3:13:18) and telephone box (4:07:57)!
Daniel Wanjiru of Kenya was the fastest man, finishing in 2:05:56. In the women’s race, a new record was set by Mary Keitany, also of Kenya, who completed the course in 2 hours 17 minutes and 42 seconds.
Our fantastic team of supporters and volunteers were out in strength along the route, ensuring that everyone got the added boost of friendly faces and rousing cheers – as well as some music from the brilliant CRY band - to carry them forward.
Runners were invited to a post-race reception at the Hilton London Green Park, where refreshments were provided and much-deserved complimentary massages were on offer. It was a lovely opportunity for everyone to meet and celebrate their achievements together.
Thank you so much to all of the volunteers and supporters who came out on the day. Finally, many thanks to our fantastic runners for braving blisters and sore legs, and for their determination and generosity in choosing to raise funds for our work.
We hope to see many of them back on the starting line again!
For photographs from the day visit bit.ly/crylm2017
were:
Dot Adamson (In Memory of Euan Adamson)
Stephanie Addison (In Memory of Emma Broad)
Chris Andrews
Beth Andrews
James Bailey
Scott Bailye
Karrie Bassett
John Battle
Justin Bayliss (In Memory of Lewis Marsh)
David Bird (In Memory of Oliver Griffin)
Jenny Boag (In Memory of Barry Nivett)
Jessica Brown (In Memory of Matthew Cragg)
Jasmine Christian (In Memory of Harry Dubois)
Russell Clarke (In Memory of John Ibbotson)
Megan Collins (In Memory of Jon Hayman)
James Cooper (In Memory of Philip Standing)
Nicola Cottrill (In Memory of Mark Price)
Christopher Creissen
Istvan Csonka
Jason Dalla (In Memory of Liam Meadows)
Thanks to our volunteers and supporters (some pictured below):
Maria Arnold, Lucy Baker, Nicola Bayliss, Zoe Brown, Michelle Campbell, Amy Cole, Helena Daniels, Steve Day, Naomi De Silva, Antonia and Mark Fallows, Sarah Fowler, Jacki Godfry, Birte and Munseng Lam, Phil Harrington, Marion and Robert Hayman, Julia and Brian Howells, Phil Llnag, Lyndsay Mcnicol, Catherine and Andrew
Paul Daniels (In Memory of Ben Daniels)
Dane Davies (In Memory of Gregg Shoults)
Mims Davies (In Memory of Claire Louise Reed)
Cristina De Piano (In Memory of Stevie Jivani)
Lindsay Deans (In Memory of Morgan Evans)
Karen Deighan (In Memory of Taylor Panton)
Annie Dixon (In Memory of Nina Jelen)
Andy Downes
Adam Duncan (In Memory of Harry Dubois)
Gareth Evans (In Memory of Martin Evans)
Catriona Farrant (In Memory of Craig Lunt)
Emma Fleming (In Memory of Christopher Dillon)
Steve Flintoft (In Memory of Mike Scott)
Jo Ford (In Memory of Sebastian English)
Eddie Foulkes (In Memory of Nathan Butler)
James Fowler (In Memory of Simon)
Richard Gill (In Memory of Chris Parr)
Carly Griffith
Alistair Griffiths (In Memory of Dylan Howells)
Shelley Harris
Thomas Hewett (In Memory of Neil Desai and Matt Cragg)
Dean Hoad
Edd Hodson
Anwen Howells (In Memory of Dylan Howells)
Joshua Hughes (In Memory of Scott Torrens)
Jo Joyce (In Memory of Patrick Swinson)
Ian Keith
(In Memory of Dylan Howells)
Ross Kerwood (In Memory of Jenny Kerwood)
Oliver King (In Memory of Miles Reid)
Ben Leeves
Mark Lennox
Ben Lopez (In Memory of Lee Vine)
Charlotte Luckett (Henderson) (In Memory of Martyn Luckett)
Kelly Mannion (In Memory of Anthony Hayes)
Daniel Marsden (In Memory of Ollie Marsden)
Nigel Marsden (In Memory of Neil Ward)
James Mcdermott (In Memory of David Green)
Robbie McLaren (In Memory of Andrew Dawson)
Sam Mitchell (In Memory of Andy Gard)
Brian Mitchell (In Memory of Robert O’Kane)
Katie Mitchell (In Memory of Andrew Dawson)
Gerald Mohabir (In Memory of Rosie Mitchell)
Rob Moody
Peter Murphy (In Memory of James Huxley)
Jaya Nagra (In Memory of Pardeep Nagra)
Bill Neely (In Memory of Katrina Brown)
Kevin Nicholas (In Memory of James Nicholas)
Lee O’Neill
David O’Reilly
Ray Osbourne (In Memory of Nathan Malyon)
Gemma Parry-Williams
Margaret Peach (In Memory of James Pettifer)
Tom Phipp
Simon Poole (In Memory of Mark Hancock)
Keith Preedy (In Memory of Alex Hubbard and Harry Faulkner)
Sophie Rhodes (In Memory of Andy Forbes)
Ben Rhymes (In Memory of Alex Watley)
Anthony Rose (In Memory of Hannah Turberville)
Matthew Sadler (In Memory of Kevin Sayer)
James Salter-Boyden (In Memory of Ben Newton)
Justine Shotton (In Memory of (David) Joshua Shotton)
Christian Smith (In Memory of Steven Bicker)
Vikki Smith (In Memory of Oliver Thompson)
Beverley Sneezum
Dan Starnes (In Memory of Ben Rendall)
Phil Sweatman (In Memory of Ben Hammond)
Maddie Tait (In Memory of Emma Broad)
Beth Andrews, a myheart member, ran the Virgin Money London Marathon 2017 with her husband, Chris, in support of CRY.
In October 2015, I had two big things on my mind. I was awaiting my electrophysiological study, to both confirm and hopefully cure a diagnosis of WolffParkinson-White Syndrome. I was also awaiting the ballot results for the Virgin London Marathon 2016.
I was one of the very fortunate people to be accepted in the ballot, but then came the date for my operation - just three months before the marathon. Unfortunately, I was just too poorly following my procedure to even contemplate running the marathon, so deferred my place. During recovery, I found CRY and was reassured by other members that the feelings and discomfort I was experiencing were normal.
As the year went by my husband Chris took up running and decided he would love to run the Marathon, too. We decided that as CRY had supported me so well it was time to give something back, and Chris applied for (and was allocated) a charity place. We fundraised like crazy, bombarding Facebook, colleagues and friends asking for support. Incredibly, we raised £4,200 in total! It was a wonderful feeling to give back to the charity and know that other young people could gain a diagnosis much earlier than I had.
We are both very determined but neither of us are particularly fast or graceful when it comes to running. This marathon really is the biggest challenge we have ever undertaken, training religiously in the run up. When race weekend arrived, we were terrified and excited in equal measure.
On race day, as I crossed the start line, I looked to my left and saw Prince William, Prince Harry and Princess Kate waving at us. I knew at that point the day was never going to be forgotten.
Running past the landmarks of London was incredible – the crowds roared and people were handing out sweets and shouting our names. I felt like a celebrity. The miles passed by quickly as we approached mile 10, where I knew my family were waiting. On spotting my mum I burst into tears, as did she. The enormity of what I was taking part in took hold. I just couldn’t quite believe I was here.
We made it to the halfway point as we crossed Tower Bridge, where the crowds were phenomenal. We spotted a camera above us and gave it a wave. I later saw messages from friends at home saying they had spotted us on the TV! The support of the crowds is like nothing I have ever experienced, I couldn’t believe we were already at halfway. I was feeling strong and enjoying every second.
Having family and friends there was such a boost, especially as the blisters set in and the pain levels increased. Our pace slowed but our determination didn’t. As we headed through the park on the approach to mile 26 and Buckingham Palace it hit me again what we had achieved, we were now minutes from finishing the London Marathon!
At the end of the run we were exhausted, but spotted a man in a CRY t-shirt beckoning us over. Several volunteers were at the greeting point and they told us why they support the charity. Listening to their experiences and about the support CRY has given them made it really hit home how important it was for us to raise this money for CRY.
It was a phenomenal experience. We’ve already entered the ballot for next year. I’ll just try not to think about the five month training plan leading up to it! Thank you to Cara and the rest of the CRY team who supported us so well throughout our fundraising and on the day. You were all brilliant and it was an honour to run for you after everything CRY has done for me.
Nicola Taylor
Pete Teale (In Memory of Zoe Teale)
Christian Tendeng (In Memory of Andy Gard)
Suzanne Thomas (In Memory of Mark Price)
Mandy Thompson (In Memory of Liana Hoyland)
Dominic Toms (In Memory of Ethan Jones)
Oscar Tuttiett
Nick Vincent (In Memory of Ben Hammond)
Michaela Waddup
Sarah Ward (In Memory of Nathan Malyon)
Richard West
Anne Whittingham (In Memory of Matthew Hesmondhalgh)
Jim Whittington (In Memory of Joanne White)
Sarah Wilcox
Jon Wilcox
Tom Wilkinson (In Memory of David Reid)
Tamsin Winter (In Memory of Martyn Luckett)
Claire Woolford
William Wright
Karen Wright (In Memory of Lewis Marsh)
“I still can’t quite believe I’ve run a marathon! But we did it!”
Entries appear in the following section according to when CRY sends written receipt for funds raised. The following fundraising was receipted from January to April 2017.
Birkett Long LLP sent in a further £4,869.90 in respect of CRY being their nominated charity of the year, bringing the amount raised so far to over £12,500. £1,200 was also sent in respect of Asher Prior Bates will storage deposits.
“Each year the firm, which has offices in Colchester, Chelmsford and Basildon, raises thousands of pounds for a particular charity and, for 2016, they chose Cardiac Risk in the Young (CRY).
Their choice was in memory of Charlotte, from Chelmsford, who worked as an admin assistant at the firm’s Colchester office and was just 23 when she died in November 2014.
A year of fundraising took place, including dress down days, a quiz, Christmas raffle, coach trips and tuck shops.
Emma Purkiss, administrator and charity committee representative at Birkett Long’s Colchester office, said: “Charlotte was a ray of sunshine and her death really affected me and the whole team. We really miss her.
‘Charlotte loved baking so we held a Birkett Long bake-off and I did a parachute jump. We had real fun in her name, and this is the biggest total we’ve raised for a charity.’
Charlotte’s mum, Kate Bome, said: ‘I am very grateful to Birkett Long for their continued support. Charlotte loved her job with them and I can see why. Her colleagues still speak about her with such affection that it makes me very proud.
‘To make Charlotte the focus for their charity fundraising for last year was a great honour and the amount of money they have raised is amazing.”’ Birkett Long
Laura Barlow sent in a donation of £1,588.40 raised throughout 2016.
• The musical group Belt Hid Oot, of Stromness Academy, sent in £216.22 raised at a musical event.
• Vicci Laird at Cooke Aquaculture Scotland sent in a donation of £1,000.
Jacqueline Goodchild sent in a donation of £420.
Dan and Doug Webb sent in a donation of £200.
• Tony Baws sent in a donation of £100.
• Carly Churchill took part in the Brighton Half Marathon and the Connemara Marathon and raised £469.
• Marc Franks sent in a donation of £850.
Liane Brown sent in £100 raised at a Christmas raffle.
Christine Wigmore sent in a donation of £100.
• Nicola Rowley sent in £342.78 in lieu of floral tributes in memory of her dad, Peter.
• Mrs S Prescott sent a donation of £342.78 received in lieu of floral tributes in memory of her husband.
Sandra Whitehouse sent in a donation of £5,005 raised throughout 2016.
Lynne Lockerby has sent £1,020 in lieu of floral tributes in memory of Alexander.
Susan Blair sent in a total of £935, including £205 raised through a collection box and £530 raised from a collection pot at the Premier Store, Millport.
Mark Blease sent in a donation of £300 raised throughout 2016.
• Lesley Bryant sent in a donation of £100 to commemorate Graeme’s 32nd birthday.
• Shirley Heywood sent in a donation of £100 in lieu of sending Christmas cards.
Richard Wade sent in £500 raised from entrance fees and donated winnings from a a pub quiz at The Rockingham Arms, Hampshire.
Matt Wilson took part in the Yorkshire Marathon and raised £1,222.11.
Elizabeth Thomson sent in £170 received in lieu of floral tributes in memory of her son.
• Gar y Watson sent in a donation of £210 raised from a weekly lottery and collections at The Bulls Head.
• Maralyn and Kenny Bowen sent in a screening donation of £171.05.
Mrs Seddon sent in a donation of £106 in lieu of floral tributes in memory of her Aunt Gladdy.
• Cannock Chase CAMRA sent in a donation of £200 raised through their annual Beer Festival.
• Brad Rushton took part in a Fitness First fundraising weekend and raised £1,129.98.
• Amy Windle sent in a donation of £851.54.
• Lisa Bramwell sent in a donation of £2,200.
• Lisa and Philip Bramwell sent in £1,087 raised throughout 2016.
• Holt Farm Infants School sent in £157.16 raised from parents and carers.
• Reynolds Catering Supplies Ltd sent in £310 in lieu of sending Christmas cards.
“£310 was raised in memory of Harley, who was sadly lost last year to an undiagnosed heart condition. Harley’s granddad, Doug, works at Reynolds and so did his mum, Michelle, so this is a charity we felt very strongly about helping. We raise money every year by donating any money we would normally buy Christmas cards with, so instead of sending cards to each other we sign one big card and the money goes to a worthwhile charity; none so more than yours.
Thank you for all the good work you do, we appreciate how crucial it is for you to keep receiving donations to continue your important work, so hope this will go some way to helping.” Michelle Bourne
• Michelle Bourne sent in a donation of £518.95 raised throughout 2016.
• John Timbs took part in the Yorkshire Three Peaks Challenge and raised £1,421.50.
“In the weeks following Harley’s death, we as a group of friends were still in shock and were dealing with it in different ways. Seeing all of the amazing tributes people were leaving on social media, it made me think of doing something as a group to raise some funds for CRY.
From my own past experience of losing a sister, I knew how much friends undertaking a challenge in her memory meant to my family, and so I thought it would be a great way of expressing how much Harley meant to so many
people. I chose the Yorkshire Three Peaks challenge and was completely blown away by the interest I got back, with 15 of Harley’s close friends committing to the challenge.
On the 9th of August we set off to the Yorkshire Dales, to a small station called Horton-inRibblesdale. On the approach to the station the enormity of the walk began to sink in. Peak one, Penn-y-ghent (694m), could be seen off in the distance and sent a chill down everyone’s back when we started to realise what we were about to undertake. Dannie had the idea to bring a time capsule for each person to put their memories in and that evening in the bunkroom each person took their time to encapsulate their memories forever by including something special within it: a great gesture of love from each of Harley’s friends. The time capsule was packed with us to be buried on the walk.
The morning of the walk and everyone was up and ready and the day was started off with a group stretch, which was a great laugh and a good way to start the day. Watches were set and we had officially begun. With only a minor detour costing us a few minutes, we were in great time and were at the top of Penn-y-ghent in less than two hours. We started to believe we could do this in less than ten hours, and it was going to be a walk in the park! A long walk later (about 4.5 hours) we turned the corner past a beautiful waterfall to see the monstrous Whernside, with calls of “That’s the SECOND one?!” (mostly coming from me, if I’m honest). I hadn’t begun hurting up until that point but knowing we still had the two biggest peaks to reach really brought the challenge home. This was a time when each and every one of us thought ‘this is for Harley’, using his memory to give us a real boost. We all kept going, scaling Whernside (736m) in an impressive time of eight hours, giving us four hours to complete the final peak before the 12-hour deadline.
We stopped at the bottom of the Whernside, where we found a small hole in a wall to bury Harley’s time capsule. Everyone collected rocks together and piled them up to surround the capsule and we all stopped for a few minutes’ silence in respect for Harley and to think about why we were all really there. I shed a few tears, but it also really picked me up and I couldn’t wait to finish the route and make Harley and his family proud. A few passers-by warned us about what we were about to face and said that Ingleborough (723m) was the steepest walk and is known as the hardest peak to accomplish.We were ready for the challenge.
Two hours later, with some extremely steep sections and the weather turning against us, we were up in the clouds, as close to Harley as ever. Hugs and high fives were exchanged: we had done the hard bit, after ten hours of walking, 19 miles and nearly 1500m of elevation all three peaks had been conquered. Now, we just had to get home.
The word ‘underestimation’ doesn’t give justice to the section of walk between the peak at Ingleborough and the bunkroom where we were going to be staying. I think everyone was so focused on getting to the top of the final peak we forgot that the challenge didn’t end there and had two hours to finish the final six miles with sore legs and little energy. As we trekked back a sign saying ‘two miles’ brought smiles to everyone’s faces, although the sign may not have been telling the exact truth as after another hour of walking Horton-in-Ribblesdale was still further away than the eye could see. Doubts about if we were going to make it in under the 12 hours were looming. Sarah and I began to run with approximately two miles left to catch up to Niall and Jonathon and, with 1.5 miles left, the four of us ran together to reach Horton-in-Ribblesdale. While leading the run I was completely out of everything and I thought if I stopped then we could all catch a break but all three of them ran straight past me. That was a special moment for me as I picked myself up and continued running. Carried by adrenaline we caught up with the front and finished with everyone at 11 hours and 55 minutes.
It was an amazing achievement that allowed us to raise over £1,400 when our original target was £500. Everyone involved is extremely proud of their accomplishment and sends their best wishes to Harley’s family and every other family affected by cardiac problems. We were honoured to do this in his name and glad the proceeds are going to such a good cause.
A special thank you to everyone who took part: Matthew Diana, Sarah Devereux, Eva Calland Waller, Jonathon Franklin, Niall Murray, Billie May Jones, Dannie Hodson, Roisin Keenan Blair, Rob Butters, Conér Swords, Matt Gayle and Nicole Bewley. Sadly, two members of the original group, Louise Stone and Serge Serra, could not make the walk at the last minute but were an essential part in the fundraising for the event.”
• Kinsale Junior School sent in a donation of £113.13 raised from a cake sale.
• Megan Bourne took part in a parachute jump and raised £702.
• Sir Robin Wales sent in a donation of £7,000 raised from fundraising events held throughout 2016 by the London Borough of Newham.
Ken and Lucie Bray sent in a donation of £200.
Danielle Jones sent in a donation of £312.64 raised from a weekly raffle.
Andrew Britton sent in a donation of £1,500.
• Lucy Clacher took part in the Richmond Marathon and raised £250.
“I was running in memory of a friend who sadly passed away at the age of 16 from an unknown heart condition. Emma was a teammate of mine and is dearly missed by so many, on and off the hockey pitch. It was my first marathon and was probably the most difficult thing I have ever done, but the feeling of completing it and helping such a great charity made it totally worth it!”
• Keith Wallis of Surbiton Hockey Club sent in a
donation of £1,226.25 raised from an annual charity day.
• Judy Broad sent in donations of £1,040 received at Emma’s grandmother’s Remembrance service.
• Briggs Equipment UK Ltd sent in a donation of £250 raised from an annual rugby match.
• Rachel Dingle sent in donations of £310.
Deb Haumpherson at Marcade Electrical Services Ltd sent in a donation of £1,000.
Perth Grammar School sent in £515.08 raised from fundraising activities.
Pauline and Gary Brown sent a donation of £100 raised through sponsorship for Gary’s skydive.
Kirstie Chilow took part in a three month Soberthon and raised £409.
Louise Barlow raised £1,832.00 in memory of her cousin.
• Hillar y and Bill Durrant sent in a donation totalling £1,034.50, including £135 raised by the SW Folk Group of the Camping & Caravanning Group at their meets throughout 2016, £400 from the Chaffcombe Village annual quiz, £385 from a coffee morning and £114.50 raised from a carol service.
• Anthony Yates sent in a donation of £550.
Kelly Burke took part in the Yorkshire Three Peaks Challenge and raised £1,015.
• Nicola Burndred sent in donations totalling £4,500.74, including £2,675 from a charity ball night, £100 from Sofia’s Kitchen, £115 raised from the Kingsfield Christmas Fair and £1,610.74 in other fundraising.
• Santander sent in a matched giving donation of £2,500 from a charity ball night.
• Biddulph High School raised £585 from a charity fundraiser. Mr and Mrs Cooper sent a donation of £150 raised from a charity bingo event.
• Helen and Kevin Burndred completed a sunrise walk to the summit of Mount Snowdon and raised £3,601.
• Sheryl Everill took part in a skydive and raised £142.
• Ben, Heather, Tyler and Jasmine took part in the Color Run Manchester and raised £931.
• Lily Booth sent in £883.50 received in lieu of floral tributes for her mother.
• Kerry Walshe took part in the Great North Run 2016 and raised £346.67.
• Colin Carlick sent in £910 raised from a collection held at Port Vale Football Club.
James Stone sent in £2,151 raised through Just Audi VW’s finance partner Motonovo.
• Angela Butler sent in £569.18 received at a screening event.
• Sinead Conroy sent in £174 raised from the Potters ‘Arf Marathon.
• Mr L Cawley sent in £600 from local Masons.
John Buxton took part in the Mersey Tunnel Run 10K and raised £358.72.
“My eldest brother, Paul, was an energetic and fit young man. He was of a slender, defined build and I always looked up to him. In 1998, Paul died of an undetected heart condition which turned my life upside down. I was 9 at the time and since then me and my family have received help and information from CRY surrounding the work they do to prevent sudden adult cardiac deaths. This is the second time I have run the Mersey Tunnel 10k in memory of my brother, and again, it was a challenge! Running through the Mersey Tunnel is surreal and yet the final miles along the New Brighton promenade were beautiful. After 1 hour 3 minutes, I completed the race and I hope my small contributions can help CRY in their fantastic work. To all the young people, including my brother, who are no longer with us: shine on.”
Katie, Joe, Sarah, Suzanne and Ray took part in the Yorkshire Warrior and raised £695.
Ian Cadman sent in £100 donated by the Lodge St Thomas No 40 charity committee.
Nicola Caldera sent in a donation of £16,535.39 to go towards screenings.
Clare Northcott raised £320 from a Christmas cocktail party.
• Debi Baker sent in £181.71 raised from a Christmas hamper draw.
• Br yony Laverick took part in a skydive and raised £532.50.
• Karen Campbell sent in a total of £3,253.36, including £1,596.02 raised at Middlesbrough Football Club, £484.38 raised from a Christmas Fayre, £654.96 from screening days, £300 from the sale of a signed Middlesbrough football shirt and £218 from an Easter hamper raffle at Hall Wholesale Meats.
• Karen Campbell sent in £2,500 from Middlesbrough & Teesside Philanthropic’s Golden Giveaway competition.
• Julie Allinson sent in £1,600 on behalf of St Bernadette’s Presbytery, raised from a charity evening.
• Kevin Waugh at Kwikflow Ltd sent in a donation of £250.
• Jill and Tony Carr sent in £175 raised from weekly lunches on Wednesdays during Lent.
• Lorraine Dixon sent in a donation of £100.
• Yasmin Sheik and Paige Jones sent in £133.45 raised from a collection at Boro Taxi.
George Cannon sent in a donation of £100.
Kevin Caudery took part in a skydive and raised £160.
• Julia Dickinson sent in £115 raised from friends and family staying at her flat.
• Mark Griffin sent in a donation of £100 collected at his wedding.
• Zinovia Limited sent in a donation of £125 from staff and customers at Munson’s café.
• Maybury Hillside Ladies Club sent in £120.
• Katie Bridges sent in a donation of £100 raised from a Halloween event.
• Nicola Buckley took part in the Born Survivor obstacle course and raised £435.
• Janine Wilson raised £208 from ‘Sober in October’.
Cameron Fahey took part in the Movember Challenge and raised £220.
Clare Perry sent in donations totalling £6,561, including £5,356 raised throughout 2016.
“Two teams and one minute of applause marked the start of a football match played to honour James, who passed away in his sleep on the 14th March 2016. The charity match was the idea of fellow footballers Charlie Ashton, Jake Sampson and Josh Benjamin. Hundreds of family, friends and fellow footballers attended the memorial match on Sunday afternoon, May 22nd, between Nailsea Athletic and Nailsea United at Grove Sports Centre. Nailsea United Football Club member Barry Sampson said: ‘We didn’t take much notice of the score as there were no winners or losers; it was raising awareness of the heart foundation to show our respect for James.’
His parents Carol and John, girlfriend Hannah and sisters Lucy, 25, Clare, 34 and Katie, 32, were all at the match, with Lucy acting as mascot.
James was a member of Nailsea Junior Football Club from the age of five before moving up to play for Nailsea United when he was 16. A Bristol City and Man United fan, James – known as Coley to his footballing friends – moved from Kent to Nailsea with his family when he was four-years-old. James’s position as number 4 in the club’s reserves team has been ‘rested’ since his death.”
“On the 24th November ‘An Evening with Gordon Banks’ was hosted at the Mercure Maidstone Great Danes Hotel.
This special evening was to celebrate the Golden Anniversary of England’s World Cup victory.
Nicola Tait raised a total of £593.13 when taking part in the RideLondon-Surrey 100 2016.
Alison and Mark Cooper sent in £691.57 representing donations received in lieu of floral tributes in memory of their son.
Guests enjoyed a photo meet-and-greet session and three course meal, before sitting back to listen to the legendary goalkeeper bringing to life the moment when the England team took victory 50 years ago.
Through a raffle and live auction the evening raised over £1,000 for CRY. James was a keen footballer and hosting this event in James’s memory seemed like a fitting tribute.”
Nicola Burrows sent in £805 raised throughout 2016.
Mrs Mavis Collis sent in £1,074 representing donations received in lieu of floral tributes in memory of her husband.
Tricia and Jim Connor sent in £282 raised from a raffle.
Sue Naylor sent in £100 raised through plant sales.
• Jackie and Alan Cousins sent in a donation of £211.40.
• Jackie Cousins sent in further donations totalling £214.80.
Manor Operatic Society of Sheffield held a panto and raised £943.
“Two CRY families are nearly £1,000 better off thanks to the generosity of the folk of Sheffield. The Manor Operatic Society of Sheffield’s panto this year was Jack and the Beanstalk and two CRY families were lucky enough to be able to collect for CRY after the eight matinee performances at Sheffield’s City Hall. The families of Neil Ward and Bruce Cousins plan to use the money for future screenings.
Elaine and Ian Ward and Jackie and Alan Cousins were grateful to the ten volunteers needed at every performance. As well as much needed funds, the CRY
displays also raised awareness and screening dates were publicised. Many thanks to Richard Foster of the Manor Operatic Society and his team. There was a write-up in the programme and CRY was mentioned at the beginning of every performance. Even the windmill seller at the bottom of the City Hall steps donated £100.” Elaine Ward & Jackie Cousins
been unstinting in their support. The match was incredibly well attended and is now firmly on the sporting fixtures list.
In addition, Matt’s friends have undertaken a plethora of fundraising events with the standout being Ryan Goggin (www.ryangoggin.com) undertaking the 2,650 mile Pacific Crest Trail in the US - truly an awesome task (and ongoing at the time of writing). The fact that more people have conquered Everest than completed the PCT in its entirety puts this venture in context.”
• John Rosier donated £1,600 raised through his 2016 Investment Chronicle subscriptions.
• Paula-Jane Shepherd sent in donations totalling £603.67, including £368.67 from an Autumn fair and £235 from an Easter Eggstravaganza.
• Mar tin Hodgson took part in the Blenheim Half Marathon and raised £2,944.
• David Fraser sent in £17,394.01 raised throughout 2016.
“The family and friends of Matthew Cragg held a number of events in 2016 celebrating the life of Matt. We inaugurated the first ‘Mattfest’ event at the Medicine Garden in Cobham. In this amazing setting a celebration was held with 500 attending. Live music, food stalls and of course bars did a roaring trade as a huge cross section of those touched by Matt’s life gathered to party – it’s what he liked best. The Medicine Garden now supports CRY, which is win-win!
• George Gangar sent in £1,600 raised by The Levels.
• Joe Vaughan sent in £175 raised from a raffle at Lincolnshire Cyclo Cross League.
• Alice Banister sent in a donation of £100.
Rod Crook sent in £14,405 raised throughout 2016.
Yvette and Kevin Currie sent in donations totalling £355 received in lieu of floral tributes for Chris’s nan, Margaret.
The family also initiated an annual Boxing Day rugby match held at Cobham RUFC for the Matt Cragg Memorial Cup. Cobham RUFC was a huge part of Matt’s life and has
Julia Dale took part in the ‘Race to the King’ Ultra Marathon and raised £432.50.
• Orkney Rowing Club have sent in £2,401.15 raised from a row around Orkney.
• Ingrid Dalrymple sent in donations totalling £1800.34, including £1,584 raised from a Christmas raffle and £216.34 from a collection box at Papdale Stores, Kirkwall.
Ingrid Dalrymple sent in £1,775.90 received in lieu of floral tributes in memory of Sally Rendall, Freya’s Aunty.
Alisha Porter sent in £1,658.49 raised throughout 2016.
• The students at Ravens Wood School sent in a donation of £2,293.12 raised from collections at a screening and from a Christmas jumper day.
• Keith Parkinson raised a total of £8,503.20 when taking part in the Brighton Marathon 2012.
Simone Davis sent in £3,321 raised throughout 2016.
• Ros Day sent in £1,818.55 representing donations received in lieu of floral tributes.
• Go Up Limited sent in a of donation £2,500.
Janine Dean sent in donations totalling £300 received in lieu of floral tributes.
Patricia Dean sent in a donation of £100.
Robert Dee sent in £650.86 received in lieu of floral tributes in memory of his mum.
Eve Dee Shapland sent in a donation of £200.
Brendan O’Doherty sent in £1,240.53 raised from a football match.
Chris and Sue Dewhirst sent in donations totalling £48,600.95, including:
£46,980.95 raised throughout 2016, £1,270 raised from the OSKA Fashion Show, £160 raised at Wrekin College, £100 raised from the Maesbury Shoot and £90 from St. Martins W.I.
• Deborah Dixon sent in donations totalling £2,220.58, including £106.33 raised from collection boxes at United Utilities, Warrington; £114.25 raised through a collection from Prima Doors Limited and £2,000 from Insight Direct.
• The JD Foundation sent in a further donation of £25,000.
• The Grange Senior School sent in £162.98 raised by the Senior School pupils.
• Alan Maddock sent in £3,112.40 raised in sponsorship from the Spinners for Screening event.
Julie Donnelly sent in a donation totalling £306, including £250 from car boot sales, £30 in lieu of sending Christmas cards and £26 from the sale of carrier bags from Gwenda Parry’s shop.
• Santander Foundation sent in a matched giving donation of £495 in respect of Tracey and Gordon Ray’s Silver Wedding Anniversary.
• Anita Turner sent in a donation of £1,397.79 raised from the celebration of her wedding.
Mrs C Dyson sent in donations totalling £710 received in lieu of floral tributes.
Dorothy Lee sent in a donation of £100.
Theresa Burge sent in a donation of £122 raised from a raffle.
• Chris Embling sent in donations totalling £1722.69, including £374.30 raised in sponsorship for Danny Tinson taking part in a body wax, £602.19 from a tea and cake sale and raffle at the CRY heart screening session at Rory’s Return and £746.20 from a University Challenge Quiz.
“Here are 2 photos from our first heart screening session held at Rory’s Return on the 5th March this year. The first photo shows Rory’s mum, Anne, with Henry Lobley, who was the first young person to be screened by Rory’s Foundation at CRY.
The second photo shows Anne and Chris, Rory’s mum and dad (centre right), and Jeff and Sandra Markham (centre left), who lost their son James aged 21 in 2001.
We are surrounded by the CRY screening team on the day who were very efficient and ensured that everything ran extremely smoothly.
102 young people were screened, with 9 being referred on for further investigations. We were able to raise £602.19 on the day via a raffle and the sale of tea, coffee and cakes. Many thanks to all those who supported us on the day.” Anne Embling
“Pictured is Rory’s dad, Chris, with John Duncan our Quizmaster, who organised the event, and his daughter Ellanna and wife Kathryn, who were his trusty helpers on the evening. The second photograph shows Chris with the winning team, Simple Minds, who retained their title for a second year. The team was comprised of Christine, David and Michael Steer. We had a brilliant evening and raised £746.20 for Rory’s Foundation at CRY.” Anne Embling
Carolyn Cornfield sent in £582 raised by the Kingussie ‘Food on Film’ festival.
Beth Chesney-Evans sent in a donation of £3,500.
• Shaun Richmond raised a total of £685 taking part in the Great North Run 2016.
• Richie Boyle raised a total of £638.76 taking part in the Great North Run 2016.
• Moz Hussain of Castle Dwellings sent in a donation of £200.
• Wendy Wallace took part in Dry January and raised £155.
• Chris Embling sent in a donation of £100 on behalf of Martyn and Julie Ashwell.
• Chris and Anne Embling donated £100 from the sale of eggs.
• Keith and Margaret Brown sent in a donation of £100.
• Mr and Mrs Bailey sent in a donation of £100.
• Douglas Wright sent in a donation of £2,250.
• Jane Markby sent in a donation of £257.40 raised from Berkhamstead School’s Sports Award Dinner.
• Sharon Mead sent in a donation of £3,435.83.
• Julian Craxton sent in £512 raised from the Radlett Junior Squash Club Tournament, bringing the season total to £1,050.
• Xena Marshall sent in £158 raised by Forest Hill Slimming World members.
• Julian Craxton sent in £130 raised at the Radlett Junior Squash Christmas Tournament.
Lauren Harper and Shane Smith raised a total of £665 when taking part in the RideLondon-Surrey 46 2016.
• Rich and Donna Fell sent in donations totalling £4,800, including £4,000 raised from Hornsea Golf Club’s year of fundraising, £300 raised at this year’s exTiger’s Charity Football Match and Family Fun Day and £500 in respect of sponsorship for this year’s ex-Tiger’s Charity Football Match.
• Abbey Artstone sent in a donation of £100.
• The Rotary Club of Hornsea & East Riding sent in a donation of £500.
• Elaine and Stuart Liggins sent in a donation of £500.
Tara Field organised a Christmas Concert and raised £500.
Margaret Fieldhouse sent in £700 received in lieu of floral tributes.
Jill Findley raised £619 from a charity bingo night.
“A charity bingo evening was organised by myself and in memory of my son, Gavin, who competed in the Great North Run on the 22nd October 2000. Tragically Gavin collapsed at the end of the race, had a massive heart attack and died. He was just 34 years of age.” Jill Findley
Fujitsu Northern Ireland sent in a donation of £500.
• Laura and Marie Fitzgerald sent in £140 raised from a collection.
• Laura Fitzgerald sent in £11,799 raised through various fundraising, including a quiz night.
“We held our first fundraising event on Saturday 25th February 2017. This was a quiz night and auction in memory of my brother, Anthony.
On the evening 200 people attended and we raised £8000. It was held at Blackheath Rugby Club where Anthony had played rugby since he was 8 years old. The Club have offered full support to working with us to raise as much money and awareness for Cardiac Risk in the Young as possible.” Laura Fitzgerald
Mr and Mrs Fitzpatrick sent in £397 received in lieu of floral tributes.
Aaron Cox sent in £270 raised from a boys’ night out.
• 161 (Ullapool) D/F Air Training Corps sent in £900 raised through cadets taking part in The Great Wilderness Challenge.
• Alex Fotheringham sent in donations totalling £261 including £200 from Made In Ullapool, £20 from Murdo Maclennan and £41.50 from Pam Eddington.
Kate and Robi Fox sent in £400 for earth moving services provided by Muscles for Charity.
“We are in the process of landscaping our garden, which involves a fair bit of ‘earth moving’ and patio removal. However, I’m not currently in a position to undertake a lot of the heavy moving, so we called on the services of Muscles for Charity. Muscles have been around for a number of years and in 2006 they kindly donated their services for our CRY auctions that we ran
at Suffolk Constabulary’s headquarters. Their process is very simple… they do the graft; you make your donation to charity. They now have branches all over the world and have raised huge sums for charity. In December the Muscles team rocked up and completed an amazing amount of work in the garden, moving tons of soil and slabs that would have taken me months. This was all accomplished purely by tea, coffee and bacon/sausage rolls! A time lapse video was made during the process which can be seen on the Muscles website at www. musclesforcharity.wordpress.com” Robi Fox
Corinna Frichot sent £470 representing donations received in lieu of floral tributes for her daughter.
Elaine Lofthouse sent in £444 raised from various raffles.
Mr Barnett sent in a donation of £300.
Charlotte Geen sent in a matched giving donation from ATOS of £200 in respect of her taking part in the Marathon De Sables 2017.
Alan Goillau sent in £786.75 raised throughout 2016.
Linda and Geoff Goodwin sent in donations totalling £3,982, including screening donations of £3,625, £81 from a Christmas raffle, a donation of £30 from Pam and Rob Price and £246 from car boot and eBay sales.
• Lancon Juniors F.C sent in £1,000.
• Our Lady’s Catholic High School donated £245.
• Mags Connolly Park sent in £500.
• Donna Peat took part in the VHI Women’s Mini Marathon and raised £2,574.34.
• Total Soccer Centres sent in a donation of £750.
• Mark Tipping sent in £2,129.49 raised from The Tipping’s Christmas Lights.
Tom and Judy Green sent in £905, including £530 donated from Mark Flemming and Sally Eastwood’s refreshment van, Van Chaud.
Gabby Broadhurst raised a total of £325 when taking part in the Great North Run 2016.
James Green and Ian Anderson
Gillian Anderson sent in £900 received in lieu of floral tributes.
Linda Pratley sent in donations of £355 from members of the Shanklin, Swanage & Purbeck, Boscombe & Southbourne and Hamble Valley Inner Wheel Clubs; Mr and Mrs Fraser and Mrs F Waite.
Julie and George Guest sent in £844.55 received in lieu of floral tributes.
Leanne Marie Haddrell
William Guider Ltd sent a donation of £400 raised from a Christmas jumper day.
• Dan Watts-Read sent in a donation of £200.
• Darragh Jones raised a total of £1,066.90 when taking part in the RideLondon-Surrey 100.
Joyce and Peter Ryan sent in £800 raised from a charity weekend.
• Stephen Hammond sent in donations totalling £3,627.50, including £2,927.50 raised throughout 2016, £200 raised from the Maidstone & District Fatstock Association and £500 from Palmstead Nurseries.
• Br yan and Marie-Josee Masters sent in a donation of £1,000.
• Staf fordshire Fire and Rescue Service sent a donation of £7,000 raised through various fundraising activities throughout 2016.
• Anne Barber sent in £333 raised along with Kate Cooper and Joan Bennett from various craft sales
• Anglea Hancock sent donations totalling £399.15 which includes £264.85 raised at a screening day and £134.30 raised by Sandyford Fire Station.
Ann, Steve and Jeny Harbour sent a donation of £127.24, including £27.24 from a collection pot and a £100 personal donation.
Jack Morrison took part in the Great Stone Walk and raised £345.
• Margaret Hardman sent in donations totalling £8,218.78, including £6,513.78 raised from the annual TH96 Run, £1,230 from an annual charity cricket match and £475 from an Elvis Presley tribute act.
“The 3rd Annual TH96 Run involved a 10 mile run between 4 of the cricket clubs in the Central Lancashire Cricket League where Tom played. Rob Etchells, Vinny Kay and Eurofabs (UK) Ltd/Airflow UK Ltd provided sponsorship.
140 people registered for the run which included teams of up to 6, individual runners and Laura and Archie the dog! Some completed all of the run whilst others completed in a relay. The weather conditions were fine and dry and entrants were warmed up before setting off by Charlotte Burrill, who was a close friend of Tom’s. A number of volunteers manned the route and at each key stage bottled water, kindly provided by a local company, was available. The final stage of the run was the most challenging with a long steep hill before descending to Middleton Cricket Club, where everyone was given a welldeserved drink and hot dog donated by Morrison’s in Heywood.
In the evening everyone came together and, for a £5 entry fee, were given a glass of bubbly and entertained by a group, The Bright Sparx, which involved Tom’s friend Liam Dodd, who he has been at school with since the age of 4. During the evening prizes were awarded to the fastest male/female team, fastest individual, fastest mixed group
and most money raised. The whole night was full of fun and laughter, especially about the pictures taken in the photo booth.
At the end of the evening a number of CRY balloons were set off into the night sky. We are extremely blessed to have such amazing support from family, friends and the whole of the Heywood community and beyond – they all continue to be amazing and we cannot thank them enough.”
“The 4th annual cricket match between Tommy’s Lemons and Eggers II was once again a brilliant day, with approximately 400 people turning out to offer their support and raise money for CRY in memory of Tom Hardman and Trevor Jones. As usual there was lots of banter between the teams and the crowd were in high spirits offering lots of words of encouragement. Tom’s friend Joe O’Neil was able to play for the first time and took control of Tommy’s Lemons in the field, which was not as easy as he expected, “It was hard trying to get them to stay in position, it was like working with under-11s”. Each year the game has been extremely close and this was no different, but it was the Lemons who emerged victorious and lead the series 3-1. There were some excellent performances, but man of the match went to Chris Rawlinson for his batting performance, although Daz, captain of Eggers II, said overall the batting let them down this year. Fundraising involved a barbecue, tombola, raffle, the sale of a programme, donations and refreshments, raising £1,230.
• Leeds Beckett University Athletic Union sent in a donation of £167.64.
Ann and Ernie Hargrave sent in a donation of £100.
Janet Anson collected donations totalling £250 from a carol singing event held at her home.
Rob Prior sent in a donation £100.
• Stephen Harrison raised a total of £2,920.80 when taking part in the Great North Run 2016, along with Lee Darling, Piers Moore, Thomas Wilson, James Peacock and John Headlam.
• Pam Woodcock sent in a donation of £323.20 raised from a quiz night held at Driffield Town Cricket & Recreation Club.
Elvis Presley Tribute Night – Tom sadly passed away on 28th November 2012, 5 days before his 22nd birthday. Every year we celebrate the 3rd December with family and friends. This year we received the kind offer from Faro, owner of The Willows in Heywood, to attend an Elvis Tribute night. The night was absolutely brilliant and it came as no surprise when Faro said that he was donating all the money to CRY, plus gave a personal donation, raising £475 in total. He is a massive supporter and has donated generously to every event since we commenced fundraising, as well as providing lunch at his restaurant for the CRY staff at the screening event held in Heywood in February 2015.” Margaret Hardman
• Jackie Haslam sent in £1,116.10 received in lieu of floral tributes.
• Taylor & Emmet LLP Solicitors sent a donation of £362 raised from a raffle.
• Ruth Hayes sent in £701.55 received in lieu of floral
tributes in memory of her son.
• Mike and Roisin Hayes took part in the Manchester Winter 10km Run and raised £1,223.15.
• Marion Hayman sent in donations totalling £2,178.50, including £1,350 from taking part in The 4 Trigs Challenge and £828.50 raised at a quiz evening.
“Liz Hayman organised the quiz to raise money for CRY in memory of her nephew, Jon Hayman. Liz, along with Della Waterfield, Brenda Pring and Leigh Dean provided a most successful evening that included a quiz, supper, and a raffle. There were 60 participants working in teams of 4 or 6. My husband, Robert, and I would like to thank Liz and her team of ladies for putting on the event and raising such a tremendous amount. It is thanks to the support of family, friends and the local community that we are now able to offer our first CRY screening session in June.”
Marion Hayman“Another amazing day for all involved in the 17th 4 Trigs Challenge.
After a very wet and blustery week leading up to the 4 Trigs race, we were granted a dry weekend, and although a little cold, none of the runners were complaining. The runners enjoyed themselves, most managing to smile at the end of this challenging task. It was particularly difficult this year, due to all the rain prior to the event, which made the course hard going, being very muddy and slippery.
The runners had to visit each trig point at Western Cliff, Buckton Hill, Beacon Hill and High Peak, and 5 checkpoints in between. This gruelling 16 mile race has a massive 3,200 feet of climb. 101 runners left the Port Royal Club in Sidmouth. We had 6 retirees.
Returning within the two and a half hours, Patrick Devine-Wright was the first competitor back with a time
of 2.19.19; Dan Nettlefield came in hot on his heels with 2.19.52; Milan Goc came in at 2.25.52; and Tim Lenton, last year’s winner, at 2.29.16. Matthew Knapp came in 5th with a time of 2.30.40. Our first lady home was Clare Hansford who clocked just over the three hours with 3.02.12. It was a brilliant effort all round.
Many runners chose to run around in small groups making it a sociable affair and they all finished in very high spirits, talking and laughing.
A very big thank you to Hayman’s butchers for sponsoring the event, in providing pasties to each runner, and also to Winchester’s for providing the bananas. Lastly, a big thank you to all the marshals and my team of ladies providing tea, coffee and cake. I could not hold the event without their tremendous support.”
Marion Hayman• Max Hayman took part in The Big Beard Shave and raised £776.16.
Chesterton Community College sent in a donation of £489.67.
• Dave Cryer sent in a donation of £1,370 raised at a quiz night and auction held at The Wheatsheaf, Garstang.
• John Waite sent in donations totalling £868 raised from the sale of his book ‘A Ramble Around Catterall & District’.
• Lee Pickering took part in the Yorkshire Tough Mudder and raised £130.
• Mark Jones took park in the Great South Run and raised £350.
• Tony Clarke took part in the Yorkshire Tough Mudder and raised £170.
• Barr y and Paula Hesmondhalgh sent in £5,000 raised from The Milk Bottle Challenge.
“After losing our beautiful 22 year old son, Matthew, to SADS in August 2011 and then learning about CRY, we knew immediately we wanted to do something to help support CRY’s mission. But, just getting through those awful days was challenge enough. It was hard to think straight let alone fundraise, so as Matt had enjoyed being a parttime milkie in his last few years, it just seemed fitting to save spare change for CRY in a milk bottle.
Soon family and friends started to collect a ‘pint of pennies’ and quickly the idea spread throughout the community and beyond. It takes a lot of time and patience to fill a milk bottle with coins (a milk bottle holds around £6 in pennies), so it’s a real challenge to stick with it. But, by March 2012, ‘Matt’s Milk Bottle Challenge!’ had begun in earnest with an overall aim of collecting enough loose change to fund a local CRY heart screening. Almost exactly 5 years on and hundreds of milk bottles later (and with probably as many people involved) the unstinting generosity shown has raised this £5,000.
So, thanks to everyone who took part - small things can make a BIG difference.” Paula
Hesmondhalgh• Nick Balderstone took part in the Yorkshire Tough Mudder and raised £105.
• Paula Hesmondhalgh sent in donations totalling
£3,863.53, including £321.05 raised from a collection held at a recent screening, £2,716 raised from the ‘Grand Raffle’ event, £500 raised from a Country Coffee Morning and £326.48 raised from the sale of items at pop up stalls.
• Sarah Taylor sent in a donation of £350 raised from a market stall.
Eleanor Battel sent in £10,166 raised throughout 2016, including from an Easter walk.
“Friends and family of Robert met at Pearl Brook in Horwich, somewhere Robert’s Dad (Harry) used to tickle trout in his younger years! I had planned a walk to the memorial forest overlooking Marklands Reservoir (Rivington) where Robert has an oak tree planted in his memory. Some of his friends who joined us on the walk today hadn’t visited the tree before, so it was lovely to be able to share one of our special places with them.
The weather was perfect, despite it raining heavily the night before. Children were excited about carrying their CRY balloons up to the tree with them, which we mostly managed, apart from a few bursting on branches in the wooded area en route!
Along the way, there were lots of lovely things to look at; the brook, a small waterfall, pretty flowers in bloom, horses and squirrels to name a few.
As we arrived at the tree, we waited at the top of the hill for little feet to catch up (well done to Arthur who did a sterling job of walking all that way). We soaked up the scenery, whilst I wondered if the Easter bunny had made a visit to the tree, after all Robert loved chocolate eggs! Robert’s brother-in-law Craig went on ahead and discovered he had left some little treats for everyone! Children raced in search of eggs (and some of the grownups too!). Everyone enjoyed a creme egg, a caramel egg, or both, before Evie planted some daffodils in front of her Daddy’s tree.” Eleanor Battel
• Simon Thorn sent in a donation of £285 commemorating Ed and Jackie’s wedding in Winchester College.
• Boon Kwan sent in a donation of £200.
Nicola Hill sent in a donation of £535 raised from a raffle and the sale of stocking fillers at the Eyam Surgery.
• Joan and Tony Hillier sent donations totalling £806.75, including £421.75 raised from a collection at Blisworth Community Choir’s concert, £30 from Brenda Warner from the sale of a painting by Wendy Freeston, a £300 donation from Joan and Tony Hillier in lieu of cards and gifts at Christmas, £30 from Mrs P Hemshall and £25 from Mr J and Mrs A M Orton.
• Michael Wreford sent in a donation of £100 raised from the annual sleigh ride around Blisworth.
• Chris Nikel sent a donation of £556.29 raised from the Big Blisworth Barn Dance Bonanza.
• Nicola Hindmarch sent in a donation of £470 raised throughout 2016.
• Nigel Hopkins sent a donation of £470 raised during a musical Elvis night organised by Fulwood Old Chapel Unitarians.
Emma Shepherd sent in a donation of £271.41 raised from the communications team at West Sussex County
Council holding a Wear It Red day.
Edna Smith sent in a donation of £100.
St Thomas More RC Primary School donated £275 raised from a Christmas jumper day.
Lyndsay Butler sent in a donation of £1,010 raised from open days held by Lavender Fields throughout 2016.
Jane Howard sent in donations totalling £881, including £517 raised through various fundraising activities and £364 from a collection at Tesco.
• Caroline Foreman sent in a donation of £187 raised through her online store, Carrie.Wardrobe.
• Alec Dyer raised £125 from the sale of refreshments at the Thames Turbo Winter Series Prize Giving 2017.
Michael Hunt sent in a donation of £165 on behalf of colleagues from the finance team at Lumesse.
Silhill Football Club sent in £335 raised by members and supporters of the club through a memorial football match.
• David Hughes sent in donations totalling £2,393, including £20 from Audley & District Family History Society, £28 from Dene Cotterill, £1,000 from Potteries Waste, £10 fom E Turner, £20 from N Etherington, £875 from Benson Electrical, £320 from D L Hewitt, £100 from Brampton Recruitment and £20 from Mr J P Wagstaff.
• David and Susan Hughes sent in a donation of £21,197.28.
• Harp of Gold, a group of friends from Sir Thomas Boughey High, sent in £1,000.
• BAES sent in a donation of £650 raised in sponsorship for taking part in the Keswick to Barrow Walk.
• Richard Higham-Thompson took part in the Insane Inflatable 5K and raised £230.
Alysa Freeman took part in The Hux Crux Challenge and raised £2,425.85.
• Cathy Ibrahimi took part in a Kilimanjaro climb and raised £12,405.13.
• Michael Turner sent in a donation of £100.
• Lucina Marcell sent in a donation of £150.
Paul King raised £155 at the inaugural AFC Chellaston Christmas CRY Cup.
“During the busy lead up to Christmas 2016 the coaches, players and parents of AFC Chellaston got together to hold the inaugural AFC Chellaston Christmas CRY Cup at Springwood Leisure Centre in Derby.
Six teams competed over three days for the honour of lifting the trophy. With the parents of the Under 7 age group winning a thrilling final 4-3 against the Soccer School parents.
Despite the very wet weather and close proximity to Christmas, the event was really well attended, with the children cheering on their parents and taking half time penalties against Santa’s little helper!
£155 in total was raised. The club chose to support this charity in memory of Reece Jeffrey, who also played for the club.
The club plan to make this an annual event and would like to thank everyone involved for their help, support and participation.”
Martyn and Alison Jenkins took part in the Lincoln Half Marathon and raised £940.
• Sutton Falcons Motor Club sent in donations of £500 raised through sponsorship of Paul Jepson’s Scott Trial event.
• Paul Jepson took part in the Scott Trial and raised £865.
Tracey Jessop-Thompson sent in donations totalling £502.70, raised from various fundraising activities including an afternoon tea event, the sale of a Christmas hamper, donations from a charity day and a personal donation.
Harry Evans sent a donation of £140.
Brenda Johnson sent in a donation of £150 received in lieu of floral tributes.
• Mar y Edwards completed a sponsored circular walk and raised £140.
• Carl and Eunice Johnson sent in a donation of £730 raised throughout 2016.
Mary Jones sent £400 received in lieu of floral tributes in memory of her husband.
• Keith Weston sent in £295 raised through his talks for Dartford Senior Parishioners, OPTARA, Sanderstead Trefoil, Norfolk Women’s Club and Woking Friendship Centre.
• Hilar y Wagstaff sent in a donation of £275 raised by her son from a sweetie jar competiton.
Tadcaster Parish Church sent in donations of £158.49 raised through a carol service held at the church by the Towton District Girlguiding Association.
“Our local Girlguiding group held their annual Christmas carol concert at the beginning of December. Each year the collection goes to a nominated charity; I put forward CRY and it was agreed. I spoke during the service about what the charity does and we prayed for my friend Ella Keeler who passed away from an undiagnosed heart condition and thanked CRY for the support they have given to her family. We prayed for all those affected by heart conditions and hoped the money raised would go some way in helping others.” Emily Ducat
Annette Keeler sent in donations totalling £500, including £350 in lieu of floral tributes and £150 from The Thames Mariner Lodge, where Bob was a highly regarded member.
Neil and Sharon Kellogg sent in a donation of £758 raised from a cake sale held at Spondon Cricket Club.
• Vanessa Parsons sent in a donation of £100 in lieu of sending Christmas cards.
• Mar tin Kerwood sent a donation of £1,677 raised from his JustGiving memorial page.
• Julie-Ann Hamill sent in a donation of £1,000 from Santander in respect of a charity football tournament and auction.
• Ulster Bank sent in a matched giving donation of £250 in respect of Janice Maxwell’s multiple fundraising events.
• Emma Welsh took part in various events throughout the year and raised £343.50.
• Richard Klitzke raised a total of £850.50 when taking part in the Great North Run 2016.
Peter Wood sent in a donation of £100.
Annette Whalley took part in the Three Peaks Challenge and raised £7,256.63.
Rothmans Chartered Accountants sent in £6,000 bequeathed to CRY in the Will of Patricia Angela Laird.
• L’Oreal UK Ltd sent in a matched giving donation of £250 in respect of Katie Harvey-Lam’s fundraising.
• Casper Lam took part in ‘Specsavers Fleet Goes to Snowdon’ and raised £701.87.
• Katie Harvey-Lam took part in the Nottingham Half Marathon and raised £364.10.
• Burston Garden Centre sent in donations totalling £545 raised through a tombola and collection tin.
“The garden centre holds an annual event where they support a charity, collecting money from customers and holding a tombola. This year they chose CRY as their charity. The garden centre further topped up the money collected from staff and customers to a total of £500; the £45 was collected in the CRY charity tin.
They have decided to make CRY their charity of the year and have created a red and white flower display alongside a poster for CRY, which will be maintained throughout the year using seasonal flowers.” Birte and Mun Seng Lam
• Cassiobury (Evening) Townswomen’s Guild sent in £350 raised through various fundraising events.
Helen Smith sent in a donation of £1,000.
Phil Lindley sent in donations totalling £175 raised from a 5-a-side football tournament.
Joanne Dean sent in £4,000 raised at a charity day.
“We managed to raise £4,000 for CRY. We also supported another charity which is fitting defibrillators in local areas in Bedfordshire which links in nicely with CRY. The day was fantastic and people donated generously which was very touching to us and Mark’s family. James, Mark, Shane and Marcus were best friends with Mark and when he suddenly passed away they promised Mark’s dad, Frank, to hold a golf charity day in his memory. Seven years later the charity day is still going strong with more and more people attending which is great for the charity and as a day to remember Mark. Myself, Karen, Nicola and Kellie all help out the boys to organise the yearly event.” Joanne Dean
Dylan Hollinshead took part in an ice hockey tournament and raised £220.
• Rachel Capay sent in a donation of £213 raised from a wassailing of festive songs and sketches, which also
included a raffle.
• Kate Martin sent in a donation of £140 raised from the sale of refreshments at a dance show.
• The Brooke Weston Academy held mufti days, cake sales and a Christmas quiz and raised £1,878.89.
• Hannah Quirk sent in donations totalling £8,472.38 raised from the Adam Lewis Effect fundraising.
• Kim Lewis sent in donations totalling £9,468.96, including £7,000 from screening days and £2,468.96 from the Adam Lewis Effect.
• Maria Leyland sent in donations totalling £180.23, including £100 raised from Team Choir and £80.23 from Derby Uni through their ‘wearing red’ day.
• Lyn McCurry sent in a donation of £162 raised at a non-uniform day and cake sale.
• Mr S Bell at Painsley Catholic College sent in a donation of £1,720 raised through a nonuniform day, raffle, talent show, an Art Club Christmas Supper and a Christmas card and cake sale.
• Ian and Maria Leyland sent in donations totalling £1,087.09, including £445 from Staffordshire Police raised through a non-uniform day, a collection and in lieu of sending Christmas cards, £42.09 from the staff at Arnold Clark car sales and £600 incorporating £350 raised from a race night held at the Hope and Anchor pub in Tean, Staffs, organised by Mark Deaville.
Penelope Stevens sent in a donation of £1,000.
• Yorkshire Building Society Charitable Foundation sent in a donation of £100 raised from the Society’s ‘Small Change Big Difference’ scheme.
• Neil Evans donated £300.
• Lee Newsham sent in a donation of £2,475 raised through sponsorship from taking part in the PDR Construction Ltd’s Tour of Europe 2016.
• Claire Milner took part in the Total Warrior Leeds and raised £2,700.
• Graham and Jenny Loncaster sent in a donation of £12,823 raised throughout 2016.
• Jonathan Cowing sent in a donation of £510.49 raised from various fundraising activites at Leeds University.
• Sally Patrick took part in the Asda Hull 10K and raised £155.
• Swanland Parish Council sent in a donation of £157.84 raised from a collection held at the ‘Father Christmas on the Pond in Swanland’ event.
Karen Smith sent in £470 received in lieu of floral tributes in memory of Richard.
Lakota Hardwick sent in £372.55, including £240 raised from the Cardiff Half Marathon and a further donation of £132.55.
• Andrew Chow took part in the Great Manchester Run and raised £132.50.
• DLA Piper UK LLP sent in a donation of £110 raised from a flower raffle.
John Lundy sent in a donation of £11,000.
Ed, Vicky and Tania sent in a donation of £161.54 raised from collection pots at Tesco Express, Baildon.
Jane Marucci took part in No Drink November and raised £225.50.
Dave Machin took part in the Three Peaks Challenge and raised £2,270.
• Donalda Riddell at An Tosgan Group (Acair Ltd) sent in a donation of £424.77 raised from holding baking mornings throughout 2016.
• The Glasgow Lewis and Harris Association sent in a donation of £250.
• Murdo Macleod sent in donations totalling £1,620.55, including £1,200.55 raised from numerous fundraising events throughout 2016 by the staff of the local Department for Work and Pensions office in Stornoway, £150 from the sale of surplus produce from Mary Murray’s vegatable garden, £250 raised by Mairi Macsween and £20 from Donald Smith.
• Amy Cunningham sent in a donation of £3,025 raised throughout 2016.
• Derek Mackay, Master and Brethren, Stornoway Masonic Lodge, sent in a donation of £100.
Janet Anne Macdonald sent in £1,010 in lieu of floral tributes in memory of her husband, Murdo.
Roger Maddams sent in a donation of £478.87 from Tonbridge Angels for the Football Fightback fund.
Annabel Farley sent in a donation of £315 raised from Springfit’s Valentine’s fundraiser, in memory of Marie.
“Springfit Gymnastics and Trampoline Club members (mostly children) held a Valentine’s fundraiser where they came in anything red or wore anything which had hearts on.We hope the money goes some way to help do the amazing job you do.”
Annabel Farley
Hayes Park School sent in a donation of £630.19 raised from a non-uniform day.
Julie Hatton sent in screening donations totalling £171.05.
• Schweppes Abbey Well Water, Coca Cola Enterprises, sent in a donation of £2,821.20.
• Michael Vella took part in the Inca Trail Trek and raised £9,026.50.
“One day we walked vertically for seven hours to Dead Woman’s Pass. Altitude was a real problem and I suffered with nausea and shortage of breath, which I can only describe as like walking up Ben Nevis twice with a face mask on. It was the hardest thing I have ever done but the sense of achievement when I hit the summit was fantastic.
I spent hours walking through jungles and rainforests, where I saw hummingbirds and hundreds of butterflies. The scenery was fantastic and the view from when I finally reached Machu Picchu will stay with me forever. It felt so magical and spiritual, and unless you walk the trail and feel it for yourself you cannot sense its values.
Three years ago I took my two children to get heart screenings and met a lady called Maureen Marshall. She informed me about Cardiac Risk in the Young (CRY), and told me about the sad loss of her son John.
Maureen is a very special person who has given up thousands of hours to CRY to help prevent tragedies in our community, and she is truly an inspiration.
We dedicated our trek to the memory of John Marshall, Zac and Kelsey Taylor, and Antony Webb - all local children who sadly died of undiagnosed heart defects.”
• Maureen Marshall sent in a donation of £250 raised from collection boxes at Edge Hill University.
• Patrick Carden donated £260 raised from the Valley Over the Hill Mob football team.
Charlie Burton at GQ Magazine sent in £426.10, including £191.10 raised from a book sale and a further donation of £235.
Mrs Sharon Martin sent in £291.20 received in lieu of floral tributes.
• Shauna Mason took part in a swimming challenge and raised £175.
• L.V.P.F.A. Committee sent a donation of £400 raised from an open garden day.
Sheila and Jack Payton sent in a donation of £200.
Kay Liquorish sent in £120.70 received in lieu of floral tributes in memory of her father.
• Pamela Wickstead sent in a donation of £375 from the members of the Monifieth Golf Club.
• Peter McAvoy sent in a total of £744, including a donation of £644 riased from the sale of a match ticket from the 1967 European Cup Final between Celtic FC and Inter Milan and £100 donated by Alice Fell.
Peter McAvoy sent in a donation of $960 raised througout 2016.
• Mark Donnan took part in the Virgin Money Cyclone Challenge and raised £140.
• Andy Hayes took part in the Virgin Money Cyclone Challenge and raised £477.
• Janette and Malcolm Pollard sent in a donation of £100 in memory of their nephew.
Stephanie Egan took part in the Great North Run 2016 and raised £350.
• Derek and Deborah Monroe took part in the Oxford Half Marathon and raised £930.16.
“With regards to both the day and the reasons behind running the Oxford Half Marathon on behalf of CRY, it would not have been possible without meeting a lady called Emma Jones. Emma’s brother Ian was taken at the age of 26, only a couple of years ago, and we were inspired by both the efforts she has put to raising funds for CRY, but also the fact that she was able to enlighten us to the terrible effects of young sudden cardiac death, as well as the great work that CRY have done in the area of research.
At the age of 51 and having never attempted such a challenge, my wife (Debbie) and I were a little nervous about the challenge ahead. However, after plenty of training, we felt “almost” ready as the day approached. It would be wrong, very wrong, to say it was easy, but the fact that we were able to walk back to the car without the aid of crutches was good enough for us. We hope to try many more events in aid of CRY, with the hope that one day I will progress to the ultimate challenge of a full marathon.” Derek & Deborah Monroe
Annette Graham-Wood sent in a donation of £100.
• Sharon McKay sent in a donation of £250 from the Cookson family.
• Rebecca McKay sent in a donation of £7,182.45 raised throughout 2016.
• Gail Kenning donated £100.
• Carole Lyder donated £150.
• Mrs Meadows sent in £180 received in lieu of floral tributes in memory of her husband.
Valerie Glenny sent in £130 raised at a recent birthday celebration in memory of her nephew.
• Karen Merrick sent in a donation of £532.71 raised from a cake sale held at the Olde Cock Inn.
• Miller Newsagents sent a donation of £181.52 raised from a collection box.
• Sue Wenman donated £630.
Claire McGillivray walked Ben Nevis and raised £728.
Mandy Taylor organised a raffle at her workplace, Martin Brower Distribution, and raised £500.
Tim Tennant sent in a donation of £130.
Kirsty Millar sent in donations totalling £18,934, including £694 raised from a Halloween charity fundraiser, £170 raised through collection pots and £18,070 raised throughout 2016.
Annie Davis sent in a donation of £4,350 raised from the Football for Rosie festival.
“140 footballers aged between 6 and 16 arrived at Sheen Mount Primary School, East Sheen, to take part in a football festival to honour and remember beautiful Rosie Mitchell and to raise money for CRY.
200 biodegradable balloons were for sale, each with a message tag made from seeded paper.
When the football was over and after the prizes were announced and delivered, all the 200 balloons were gently released while everyone came together to remember a wonderful and beautiful girl.” Kate Groves
Leon Moody sent in a donation of £140 raised from the sale of two tickets donated by F.G Western.
• James Rice sent in a donation of £130 raised by the Hedon Rangers.
• Jane Moorfoot sent donations totalling £1,690 received in lieu of floral tributes.
• Christopher Shanks sent in a donation of £135 raised from a weekly soup lunch during Lent.
It was a stunning, warm and still day. There was a lot of laughter and smiling faces. As there was a prize for the best team name and best kit people had arrived in fabulous costumes - sumo wrestlers, tutus, Disney characters to name but a few - and were called all sorts such as ‘The Zooming Sumos’, ‘Rosie’s Rockets’, ‘Roehampton Rhinos’. The mood was set for a special day.
There was a barbecue, buzzing cake sale, a bar, stalls selling candles and head bands, face painting and other mini events.
Everyone played at least 3 matches of football in a festival format! There was no overall winner.
Janet Hodgson sent in a donation of £200 raised from various shows and raffles throughout 2016.
• Cardiff University Hockey Club took part in cycling from Land’s End to John O’Groats and raised £1,049.95.
• Roger Morris sent in a donation of £155.
• Cardiff High School held a ‘Throw the Ball’ football competition and quiz night and raised £631.
• Staf f and students of Birchgrove Primary School sent in a donation of £1,000.
• Judith Miller sent in a donation of £883.75 raised from a cake sale at her screening weekend.
• Sarah Johnson took part in cycling the Isle of Man TT Course and raised £140.
• Yvonne Moss sent in a donation of £7,705 raised throughout 2016.
• H & G Wilde Funeral Directors sent in a donation of £215 raised through a raffle at their annual memorial evening.
Dawn Moss sent in donations totalling £2,255, including £145 from Biddulph Mountain & Hiking Club, £560 from Wags Hair Salon, £1,000 from Siemens, £100 from Cakes by Millrise, £98 from Biddulph Slimming World, £40 from Mrs Critchley and £12 from Knypersley Stores.
• Penny Killen sent in a donation of £113 raised from a Christmas fun day.
• Emma Moth sent in £690.20 raised from a collection at Paige’s funeral and various fundraising activities including a cake sale, a raffle and collections from children’s centres.
Colin and Sandra Mulford sent in donations totalling £100, including £50 raised from golfers at Addington Palace Golf Club, a £10 donation from a friend and £40 from Colin and Sandra.
• Laura Bell took part in a skydive and raised £1,062.
• Ally Moncrieff sent in £281 raised from collection boxes in his shop.
• Heather Smith sent in a donation of £200 from the members of the Tay and Lyon Churches Guild in respect of a talk by Gordon Murch.
Amanda and Adrian Topp sent in a total of £6,400 raised through various fundraising events including a raffle and fundraiser during the annual flu campaign at Springs Health Centre, a fundraising weekend at Dobbies Garden Centre, a cake and coffee day and donations from family and friends.
• Resham and Dalbag Nagra sent in a donation of £300.
• XL Services UK Limited sent in a donation of £250 raised through CRY being their charity of the year.
• Resham Nagra sent in donations £3,579.26, including £100 from a screening and £3,569.29 from celebrating Pardeep’s 30th Birthday.
• Davinder Singh took part in a Coast to Coast bike ride and Peak District Challenge and raised £1,000.
• Ikbal Sunda took part in a Coast to Coast bike ride
and Peak District Challenge and raised £1,000.
Lauren Swan sent in a donation of £500.
Trinity Saint David Students’ Union sent in a donation of £3,097.32 raised at a basketball tournament.
“On Saturday the 26th of November, the basketball team from University of Wales Trinity Saint David organised a memorial tournament in honour of their late captain and friend Dominic Newton, who sadly passed away in October.
and friend. We would also like to thank the LC Swansea for allowing us to use their venue on the day, and all the staff that helped set up and organised the raffle on the day.
All proceeds from this event went towards Cardiac Risk in the Young. Our goal this year is to raise awareness and enough money for a screening to be held in Swansea at our university, in order to allow students and other young adults in the Swansea area to be screened.
The event could not have gone better, with 10 teams participating in the tournament which included Dominic’s old team, Bristol Braves. Hundreds of supporters also came to watch the games, including Dominic’s family and friends from Bristol. Over the course of the day we managed to raise around £3,500 for CRY. The UWTSD Owls also donated a framed Dominic Newton jersey to his family on the day, as shown in the pictures.
We would just like to say a massive thank you to everyone who turned up to the tournament and who donated to such a great cause and in memory of a great teammate
Once again a massive thank you to everyone who made the event a big success and also to Cardiac Risk in the Young for all the hard work you do to help young adults!”
Joe EdwardsAndrew Thrower sent in a donation of £300 raised from the Manchester Basketball Tournament 2016.
• Kevin and Lesley Nicholas sent in a donation of £1,145.65 raised from a bingo night.
• Kevin and Lesley Nicholas sent in a donation of £28,000 for future screenings.
Lorraine Nicholls sent in £846 raised throughout 2016.
Derek and Pat Northedge donated £100.
• Chris Oliver sent in £1,300 received in lieu of floral tributes in memory of his son.
• Ms Gammelin sent in a donation of £100.
• Andrew Edmond sent in a donation of £200 raised at the Ferryhill Wheelers ‘100 in 7’ Ride.
• Alison Howells sent in a donation of £320 raised from the Weleda Wellbeing event.
• Sherrie Brerton at South Cheshire College donated £3,500 in memory of Ceri.
Janet Palmer donated £140.
Nick Roy donated £100.
DHA Architecture Ltd sent in a donation of £300.
• Lee Ann Harkness took part in a bungee jump and raised £925.
• Wendy Panton sent in donations totalling £33,004.54, including £22,204.54 raised throughout 2016.
“Following the passing of Taylor on 15/10/15, it was our intention to set up Taylor’s fund to help provide cardiac screening for other youngsters and potentially prevent the tragic experience every family endures when losing a child.
We had many events such as our ladies day, kids’ disco, various bag packing days at Tesco and Morrisons, Leann’s jump off of the Titan crane, Karen running the London marathon, Garry running the Stirling marathon, donations from Airdrie Round Table and Airdrie Rotary and also Taylor’s school - St Margaret’s High, who have all contributed to raise over £20,000 for CRY.
As supporters of CRY we take great pride in helping fund continued screening, research and raising awareness of treating young people with an inherited cardiac condition.
We could not do this without the amazing support of friends and family within our community, in memory of Taylor Panton.” Robert, Wendy and Holly Panton
Patricia Parker sent in a donation of £262.45 received in lieu of floral tributes for her husband.
• Bernadette Parker and Gary Hawkins sent in a donation of £515.
• Katherine Greening and the young people of Anstee Bridge sent in a donation of £250 raised from putting on a production of a play, Fried Chicken.
Joe Parkinson
• Paul Stanton sent a donation of £250 in respect of his children’s screening at Prescott School.
• Holly Parkinson sent a donation of £190 raised through a JustGiving memorial page.
Andrew Parr
• Ruth and David Lowe sent in a donation of £280 raised throughout 2016.
• Ruth Lowe sent in £375.49 donated at screenings organised and funded by the Heartfelt Group, Preston, in memory of Andrew.
• Dr David Lowe donated £240.68 in respect of royalty payments from his book.
Dianne Parr sent in £205 raised in lieu of floral donations in memory of Christopher’s Nana.
• Kate Youngman sent in a donation of £2,154.44 raised from a charity comedy night.
• Jan Ayirgan took part in climbing Mount Kilimanjaro and raised £1,750.
• Kiera Kilgarriff sent in a donation of £6,881.56 raised throughout 2016 by Andy’s friends and family, that included taking part in the Manchester 10K, York 10K, Gateshead 10K, Bolton 10K, Total Warrior 12K assault course, London Bridges Walk with CRY, the Colour Run in Manchester, a Mount Kilimanjaro trek, a comedy night and the Amsterdam Marathon. Further funds were also raised at a heart screening day held in Andy’s memory in January this year.
• Alex Youngman took part in the Total Warrior event and raised £536.
• Mar tina Kilgarriff climbed the Hellvellyn, Skiddaw and Scafell mountains in 48 hours and raised £570.
• Heather and Robert Stanley sent in a donation of £690 raised through taking part in the Thames Path Challenge.
• Mr B Sams sent a donation of £305 raised from a raffle.
Scott Gourlay raised a total of £935 when taking part in the Great North Run 2016.
Gordon Paul sent in £30,276.92 raised through various fundraising events and donations.
• Mark Pearce sent in £150 received in lieu of floral tributes in memory of his son.
• Anthony Pearce sent in a donation of £200 in memory of his grandson.
• Loretta Pettifer sent a donation of £5,559 raised throughout 2016.
• Nicholas Walsh sent further donations totalling £1615.66 from The Sacred Heart Language College’s Shamrock charity event.
• Jon Mays took part in the Vitality London 10,000 and raised £939.58.
• Deutsche Bank sent a matched giving donation of £929.58 in regards to Jon Mays taking part in the Vitality London 10,000.
Emily Hooper took part in the Roseland August Trail Series and raised £2,559.
• Bethan Phillips sent a donation of £1,590 raised through a run, cycle and walk with the Leamington Brakes Football Club.
• Bethan Phillips sent in a donation of £822.53.
Kayleigh Gazzard completed a bungee jump and raised £241.
Julie Phillips sent in a donation of £2,986.
Pippa Loughran took part in hiking the Alps and raised £230.
Rachel Little took part in The Buchaille Dash and raised £560.
Rita Ponting sent in a donation of £100 received in lieu of birthday and Christmas presents.
Simon Preston sent in a donation of £350 raised throughout 2016.
Joan Pybus sent in a donation of £150 jointly raised by Joan and her sister-in-law, Jill Pybus, from a Chocoholics party.
Gillian Pye sent in £802 received in lieu of floral tributes.
• Ann Ward sent in a donation of £242 raised through a carol service at the Alverstone Old School Hall.
• Andrew Quew sent in donations totalling £1,007.32.
Lynne Rathbone took part in the Yorkshire Three Peaks Challenge and raised £360.
Sean Reading sent in a donation of £11,356.65 raised throughout 2016.
• Heather Reid sent in donations totalling £560, including £450 from City Limits Dance Studios and various donations totalling £110.
• Marsha Raynes at Kiveton Park Medical Practice sent in donations totalling £797.90, including £371.25 from Megan Holroyd, £369.65 raised in sponsorship for Jayne Fields taking part in a half marathon, £17 from Kiveton Park staff and £40 from patients at the surgery.
• Anya Lotay sent a donation of £440 raised from SUPRA’s Yorkshire Three Peaks Challenge.
• Rosalyn Barber donated £412.50.
• Callum Corcoran took part in a London to Paris Cycle and raised £2,810.
• Oliver King sent in a donation of £415 raised throughout 2016.
• Rosalyn Barber took part in the York Corporate Marathon and raised £778.50.
• Mr C Rendall has sent £2,257.83 received in lieu of floral tributes in memory of his son.
• James Quirk at Complete Lifestyle & Sports Success sent a donation of £311.
• Sylvia Pezzack sent in a matched giving donation of £461 from Barclays Bank.
• Br yan and Margaret Stevens sent in a donation of £250.
Ann Demaine sent in a donation of £525 raised at a St Piran’s Day fundraiser.
“When we lost our son Thomas 18 months ago in a supposed road traffic accident we were bereft. Being a family that has spent a lot of time playing, coaching and managing rugby in the community, our rugby family were amazing and folded their arms around us in strength. Some months later we discovered that Tom had left ventricular hypertrophy and the circumstances of his RTA suggested that he had almost certainly suffered a fatal dysrhythmia causing his accident.
So it made sense to utilise the resources of the rugby community when we held a ladies day at the club we belong to, St Austell RFC. Having been involved in women’s and girls’ rugby for 17 years, following our daughter Lucy from U7s rugby to a full England cap in 2016, ladies day meant to us a celebration of all that is good in women’s and girls’ rugby. The plans of a friendly ladies match grew to a full blown festival of girls’ rugby and an invitational charity match for the ladies. A young girl at the club asked if she could help raise money for diabetes as she had just developed type 1 diabetes herself. We decided to extend the remit of the day to CRY and JDRF (a type 1 diabetes charity) – that seemed to make sense, after all – and advertised the event some months in advance to ‘save the date’.
We could not have predicted that the lovely Sylvia and Leon Pezzack would, by chance, be alerted to this event when their granddaughter Lucy
Rendle, now playing junior girls’ rugby in the new team at Penzance Newlyn RFC, picked up my adverts on
Facebook. Lucy’s mother, Debbie Rendle, had died a sudden cardiac death 10 years previously due to long QT Syndrome. We were on the brink of setting up a CRY Memorial fund for Thomas, but Sylvia told me that she was already planning for cardiac screening to take place in St Austell in 2018. Could she help us and could our donations contribute to that? The answer was of course, yes. This lovely lady has raised £42,000 over the last 10 years – another inspiration!
So suddenly we had 150 young ‘ladies’ (aged 1253y) coming to play rugby from all over Cornwall and our guests from Devon. Two big charities were involved and we had 3 main aims: to raise awareness of women and girls rugby; to raise awareness of two conditions that hit children and young people far too often and affected members of our club and community directly; and to raise funds for the two charities. On top of that we planned to host it right in the middle of the Women’s Rugby 6 Nations and in the Women’s Rugby World Cup year, so it was clear that these inspirational rugby ladies had to make their entrance.
The celebration became enhanced by the presence of some of the England Red Roses who came to support the event.
Amber Reed (England, Bristol), Jo Yapp (England’s U20’s head coach), Poppy Leitch (England & U20’s, Bristol), Michaella Roberts (U20’s, Cornwall, Plymouth Albion) as well as England and Academy players Lucy Demaine, Clara Nielson, Alex Powell, Kate Alder and Lauren Chenowethwho gave up their time to support and talk to and inspire girls and ladies. Alex Powell lost her mum to hypertrophic obstructive cardiomyopathy a couple of years ago and is in fact the reason we had heard of CRY.
All of our VIPs started their rugby careers in the SW of England, as did our all-female refereeing team of Jess Veacock (Devon), Cloe Waterfield (Plymouth) - who also has type 1 diabetes – Lucy Smith (Devon) and Hannah Bryan (Devon).
Generous donations of several items, along with raffles, sale of programmes, cakes and food resulted in £1,050 being taken for the two charities.
Girls represented Cornish teams from St Austell, Camborne, Helston, Penryn, Penzance Newlyn, Liskeard Looe, Launceston and Newquay as well as Devon visitors from Paignton, Newton Abbot and Plymstock Oaks rugby clubs.
In the rugby world we often say that ‘Rugby is the winner’ rather than worrying about the scorelines, when we are just happy with watching or playing the game. In this case, not only was Rugby the winner, but so were CRY and JDRF. As well as the money, hopefully 150 girls and their friends and families are now more aware of these conditions that kill or seriously affect young people, and the hope that more cardiac screening can take place in 2018 in Cornwall will be realised.”
Ann DemaineMike Ridgway sent in a donation of £100 from Zoe Hall in lieu of floral tributes.
• Robby and Sharon Roberts sent donations totalling £2,345, including £250 raised in lieu of floral tributes in memory of Alex’s Grandma, Sheila; £2,095 raised through a collection at the Village Home pub in Gosport and Sharon completing a parachute jump.
“The money was collected in a bottle on the bar, added to by a sweepstake guessing the amount in the bottle and a parachute jump by Alex’s auntie, Sharon. Sharon is (was) scared of heights, but on her 50th birthday wanted to do something out of the ordinary to mark the occasion and raise some money for CRY. She did the jump at Old Sarum
Airfield in Salisbury from a height of 15,000 feet, raising over £1,000.”
Terry Roddy sent in a donation of £150.
Whitmore High School sent in a donation of £737.52.
Angela Rogers sent in a donation of £270.
Ulrike Rowbottom sent in a donation of £250 from the Women’s Institute, Abingdon.
• A 14-strong team, made up of staff, friends and customers of Huws Gray Builders Merchants, Telford, took part in a 10K mud run and raised £1,320.
“This was a 10km mud run over various obstacles and was done in memory of my daughter, Danielle Rowe, who lost her life to sudden cardiac death in May 2016 at the age of 24. Danielle is also the step daughter of Stewart, one of the Huws Gray staff that were competing and who had the initial idea to do this. Nobody had done a mud race before, but everyone was up for it as they had been moved by what happened to Danielle.
The Manager at Huws Gray, Lee, contacted CRY about the event and sponsor forms were sent out and filled in by customers of Huws Gray, our family members, my work colleagues and other people. In preparation for this event, a few of the team went out running three times a week for a month or so, to build up their fitness and stamina ready for the big day.
On the day, everyone was keen to get going and after two long hours everyone had finished with a great sense of pride and achievement and with a smile on their face! Wives and other family members turned up to cheer on the participants, and a mention was given by the compère about who the team were raising money for.” Caron Coates
• Caron Coates and Peter Starling organised a charity race night and raised £2,650.
“A charity race night with auction and raffle was held for CRY. The venue was Allscott Sports & Social Club in
Telford and was attended by members, family and friends. A lot of hard work went into making this event a success by Peter Starling who is the Chairman of the sports club and organised the races, as well as myself who wrote numerous letters to companies, football clubs and local businesses asking for prizes to be donated for the auction and raffle. Both were in memory of Danielle Rowe.
This was the first event done for CRY at the sports club and it was very well attended, with many people commenting about what a great cause it was and what a good time they’d had during the evening. Everyone involved in the charity night can feel immensely proud that their support and generosity will enable more screening that will ultimately save more lives.” Caron Coates
Dan Wilson raised a total of £670 when taking part in the Great North Run 2016.
Mary Sands sent donations totalling £330 received in lieu of gifts to celebrate her eightieth birthday.
• Amy Edwards-Smith sent in a donation of £2,100
raised from a charity lunch and auction.
Steve Flintoft raised a total of £350 when taking part in the Great North Run 2016.
Michael Tunstall took part in a ‘Ride and Stride’ across North Wiltshire and raised £122.50.
Doreen and Kenny Seymour sent in a donation of £3,754.28 raised throughout 2016.
Emily Jennings sent in a donation of £7,340.27 on behalf of Entertainment Today Ltd, raised from a Christmas in Hollywood event.
Fiona Shoults sent in a donation of £15,535.97 raised at Greggstival 2016.
Colin Simpson sent in £100 in donations received over the Christmas period.
• Danielle Hedley completed the Carlson Rezidor UK Cycle Relay and raised £467.50.
• Karen Armstrong took part in the Carlson Rezidor UK Cycle Relay and raised £205.
Forest School sent in a donation of £592.05 raised from the 2016 Forest Fusion event.
• Lindi Roe sent in a donation of £150 raised by members of The Wimbledon Club as part of their year supporting CRY.
• Richard Holliday sent a donation of £600 raised through The 123 Club.
• The Wimbledon Cricket Club sent in donations totalling £636.90, including £311.06 raised from collection boxes and £325.84 raised through fundraising actitivies.
Jennifer Smiley sent in a donation of £170 raised from the sale of stained glass hearts for Valentine’s Day.
• Fran Griffiths sent a donation of £375 raised from a charity event held at Altrincham Leisure Centre.
• Sally Woods sent in a donation of £100.
• Oliver Smith cycled from Land’s End to John O’Groats and raised £6,465.72.
Company, £20 from Elaine’s sale of sweets and £8 profit from Esh Leaves.
Rowena and Julien Upson sent in £250 received in lieu of floral tributes in memory of Rowena’s mother, Vera.
Sue Fisher took part in the Diamond Challenge and raised £200.
“During 2016 I completed a Diamond Challenge to celebrate 60 years of the Duke of Edinburgh Awards. As I am in my 60s and I used to skate in the 60s, I set out to skate 60 hours having not skated for 45 years! The challenge was staying upright and fitting the hours in!
Mrs B Gibson has sent donations totalling £250.40 received in lieu of floral tributes in memory of her husband, Ian.
• Hannah Bickerdike sent in a donation of £100 raised from the students and staff of Framwellgate School.
• Linda Smith sent in donations totalling £19,425.30, including £19,014.90 raised throughout 2016, £150 from David Barber and friends, £71.40 from New College Durham Health & Social Care Students, £126 from a Doncaster trip, £35 from Blue Bow Bridal
I managed to skate in Christchurch, New Zealand; Brisbane, Australia; Swindon; Twickenham; Basingstoke; Gosport and Winchester. I fell and broke my wrist on the 56th hour but fortunately have managed to squeeze the last 4 hours in within the allotted time. To all those who sponsored me I promised to match the funding raised and give it to CRY in memory of my son, Phil.”
Debra Giles sent in donations totalling £325.
Mark and Alison Starrett sent in donations totalling £200, including £60 in lieu of sending Christmas cards, £100 donated from Robert and Edna Starrett and £40 donated from Ruth and Jim McAree.
Linda Bourne sent in £174.17 received in lieu of floral tributes for her daughter.
Mary Stiller sent in a donation of £110 raised throughout 2016.
Darren Simpson took part in ‘Going Dry for Cry’ and raised £550.
Mike Styles donated £200.
Emma Riley took part in a Tough Mudder and raised £1,335.
“On 6th January 2016 my fiancé Craig suddenly passed away. He was at work, just a normal day, with his whole life ahead of him. We had a holiday to Florida planned that year and our wedding booked for the 10th June 2017. On this day my whole world fell apart when I got the call at my work to say that Craig had been taken to hospital because he had collapsed. He was the kindest, most caring person I knew.
This whole year has been a rollercoaster, but myself and Craig’s friends and family have all stuck together and supported each other. When we found out that Craig had passed away from sudden adult death syndrome we wanted to do something for CRY to help stop this tragedy happening to another family. Craig loved being active and would have loved to do a Tough Mudder, so we decided to sign up to do it. It was physically and mentally difficult but I know one thing: Craig would have been so proud and laughing at us all in the mud.” Emma Riley
Beryl and David Ewing sent in a donation of £160 raised from the sale of handmade Christmas cards and donations.
Barclays Bank Plc sent in a matched giving donation of £550 in respect of the SpeedStriker event.
• Inspired Health & Fitness gym members took part in a Santa Dash and raised £500.
“On Sunday 18th December 2016 we held a Santa Dash for Dale Tennent-Butler’s memorial fund which holds CRY heart screening for local Kings Langley young people. This year we held our 5th screening at Kings Langley School – so we have tested close to 1000 young hearts.
We raised £4,000 which includes a donation page from Howard Button for completing the run – which is currently standing at £3,351.00.
Roger Benison sent in a donation of £7,000 from various fundraising activities at Crowborough Beacon Golf Club throughout 2016.
• Jan and Dave Norris sent in a donation of £500 raised from the London Open Taekwondo event.
• June Thomas sent in a donation totalling £3,167.98, including £87 collected at Blackwood Asda, £322.12 collected at Brynmawr Asda, £89.62 collected at Cross Oak Inn, £288 donated at a February screening event, £500 donated by Claire O’Keeffe and family, £287.07 from Betty Boutique Blackwood, £459.40 from the Taekwondo Wales cake bake, £117 from a cake bake sale held by CCBC Cherry Tree office staff, £25 from Bobby and Elaine Duncan and £1031.77 from the sale of Karen James’s Christmas tree angels.
Sandy’s Songbirds Choir held a Christmas carol evening and raised £304.45.
This is the first year that the Santa Run has been held and we hope to make it an annual event, we had 55 runners of all ages and abilities, it was a real community event.
The event was organised by Inspired Health & Fitness, where I am a member. I have been touched by how supportive they have been for Dale’s fund – this is the second event they have helped to arrange this year!”
• Ed Davies took part in a skydive and raised £563.72.
• Alan George took part in a skydive and raised £550.
• Sheila and Lee Bryant sent in a donation of £859.68 given in lieu of gifts to celebrate their wedding.
• Valerie Holdsworth sent in a donation of £100 from the Holy Trinity Social Club, Lamorbey.
• Kevin Morrisey sent in a donation of £250.
• Wilmington Grammar School for Boys sent in a donation of £385.25 raised through various fundraising.
Mark McFern sent in a donation of £1,628.67 raised from a golf tournament which included an auction, raffle and quiz.
Katherine Goodwin from the Under 35s Reinsurance Group sent in a donation of £1,500.
• Mohammad Ali sent in a donation of £100.
• Mr M Tillbrook sent in £135.20 received in lieu of floral tributes for his daughter.
• Katie Mills, Della, Leo, Paul and Andrea sent in a further £1,870 raised from taking part in the South Coast Challenge.
• Niamh Connolly took part in the Color Run London and raised £660.
• Julie Crostarosa-Sugrue took part in the Color Run London and raised £3,737.
• Stuart Smith took part in the Beast event and raised £975.
• John Bell at Glenny LLP sent in a donation of £500.
• Alan Mair took part in a Kilimanjaro trek and the Run Around Mount Blanc and raised £410.
The Rotary Club of Harpenden sent in a donation of £675 raised from collections when sleighing around Harpenden and Wheathampstead.
• Barney Horn donated £100.
• Jackie Turberville sent donations totalling £737.50 raised in lieu of floral tributes in memory of her husband, Brian.
Mark Jenkinson sent in a donation of £630 raised from a charity boxing night organised by BP Rugby Union Club (BPRUFC).
Will Ascott sent in a donation of £647.75 raised from the annual Chinstock Fundraiser.
• Mrs Vine sent in £3,167.62 received in lieu of floral tributes in memory of her husband.
• Stephen and Theresa Guise donated £100.
• Judith Lawson took part in the Great Manchester Swim and raised £175.
• Fiona Waddell sent in a donation of £200 raised from the profits of a Saturday
café run by volunteers at Altrincham Methodist Church.
• Katie Greenwood took part in the Great Manchester Swim and raised £435.
• Alan Hathaway sent in a dontion of £200 on behalf of Discovery Research.
• Marissa Rodney sent in a donation of £1,268.
Lorna Walton sent in a donation of £200 given by a neighour in memory of Lorna’s great grandson.
Elaine Ward sent in donations totalling £2,815.20, including £220 from the Derbyshire Federation of WI’s Carol Service, a donation of £50 in lieu of sending Christmas cards from Joan Rowland, £55 from Dronfield Welcome Club and John Arrowsmith, £132.20 from Holmesfield WI Carol Sevice, £120 raised from collection boxes at Gosforth Fields, £114 raised by The Manor Operatic Society, £1,100 from Dronfield Singers’ concert, £16 from the sale of two tickets for the Dronfield Singers’ concert, £50 raised from a talk given at Drone Valley Rotary and £15 from Stuart and Deidre Cutts in lieu of a wedding anniversary present.
Manor Operatic Society of Sheffield held a panto and raised £943.
“Two CRY families are nearly £1,000 better off thanks to the generosity of the folk of Sheffield. The Manor Operatic Society of Sheffield’s panto this year was Jack and the Beanstalk and two CRY families were lucky enough
to be able to collect for CRY after the eight matinee performances at Sheffield’s City Hall. The families of Neil Ward and Bruce Cousins plan to use the money for future screenings.
Elaine and Ian Ward and Jackie and Alan Cousins were grateful to the ten volunteers needed at every performance. As well as much needed funds, the CRY displays also raised awareness and screening dates were publicised. Many thanks to Richard Foster of the Manor Operatic Society and his team. There was a write-up in the programme and CRY was mentioned at the beginning of every performance. Even the windmill seller at the bottom of the City Hall steps donated £100.” Elaine Ward & Jackie Cousins
• Fiona Austin sent in a donation of £110.43 raised from a dress down day at WYG Engineering Ltd.
• Santander Foundation sent in a matched giving donation of £190.46 in regards to a dress down day.
Fulcrum Automotive Limited held various fundraising activites and raised £195.
• Melanie Webster sent in donations totalling £5,801, including £3,500 raised from a quiz night and summer and winter stall, £1,301 raised throughout 2016 and a matched giving donation of £1,000 in respect of a Captain’s Golf Day at Stowmarket Golf Club.
• Benjamin Hobdell donated £100.
Dan McGinley took part in ‘500 miles in 2016’ and raised £1,031.57.
Mrs T Reid sent in £218.20 received in lieu of floral tributes in memory of her mother.
Bar 39 sent in a donation of £122 raised from a Christmas raffle.
Daniel Goatham sent in a donation of £500.59 from the Davee Wild Memorial All-Dayer.
Mike and Lyndsey Armitage sent in a donation of £3,000 raised from the Ash Music Festival.
Karen Williams sent in a donation of £100.
Katie Williamson sent in £500 representing donations received in lieu of floral tributes in memory of her husband.
• Lady Hodgson CBE sent a donation of £100.
• Laura Heath donated £100.
• Paul and Sue Crook donated £150.
• Daisy Shirley-Beavan donated £100.
• Andrew and Penny Wilson sent in a donation of £100.
• Coral Briggs donated £100.
• Judith Allen sent in donations of £310 raised through ‘The Joy of Jemima Day’, to commemorate her birthday.
• Charlotte Breninkneijer sent a donation of £250.
• Victoria Pentecost sent donations totalling £204 raised from The Novae’s Wear Red for Valentine’s Day.
• David Frere-Cook sent in a donation of £100.
• Birgitte Woehlk sent in a donation of £2,000 raised from the Global Bake-Off.
“We do love a good old fashioned Bake-Off at Design Bridge and so, in memory of our dear friend, colleague and all round good egg Jemima - we held the biggest Bake-Off our agency has ever seen!
Spread across all four of our studios – London, Amsterdam, Singapore and New York – we challenged
Marcus Bushe took part in the Potteries Marathon and raised £235.
the team to bake their tastiest and most creative bakes yet. With the ultimate prize of an extra day of holiday, the stakes were high.
We piled our “Choose Cake” boxes high with tasty treats, voting for our favourite to determine the 1st, 2nd and 3rd prize winners in each studio. Our grand prize judge, Johanna, very democratically crowned an overall winner in each studio, and we spent the rest of the day feeling incredibly full.”
Annabelle Woodward sent in £9,544.91 raised throughout 2016.
CRY Represenatives Elaine and Ian Ward attended The Event Industry Fair at Sheffield Hallam University, where final year Events Management students raised £478.98.
“The event was a real success, we had over 170 students through the door with 23 companies showcasing their opportunities within the events industry including: placements, graduate jobs, volunteering, paid work and internships. We had such positive feedback from all companies, students, and university staff saying how much of a success the event was. The students thoroughly benefited from the fair too and it was a lovely atmosphere full of events professionals.
The students networked with the companies, and even the companies were networking among themselves and learning more about CRY through Elaine and Ian. It was a lovely day!”
Francesca Kocura• Jocelyn Harrow donated £500.
• James Finlayson sent in a donation of £100.
• Ms O’Connor sent in a donation of £100.
Val Carmichael sent in a donation of £2,000 raised by two evening concerts in December organised by Val and Sarah Westcott.
• Oliver Barron sent in £525 donated by MMS in further sponsorship of the Arran Challenge.
• Jackie and Tim Worboys sent in a donation of £100.
• Amanda Whone sent in £110.
• Dr Stephanie Brown sent in a donation of £735 raised from the Construction Rocks 2016 event.
• Catherine Whitelaw took part in the Rob Worboys Arran Challenge and raised £615.
• Craig, Gordon, Mark, Rachel and Pam took part in the Rob Worboys Arran Challenge and raised £1,220.
• James Thompson at Cushman & Wakefield sent in a donation of £200.
• Kate Twigden donated £250.
Shirley Wort sent a donation of £1,200 raised from an annual hay bale sale.
• The University of Derby sent in a donation of £2,282.15 raised at a Dressto-Impress staff party.
• Elaine Wright raised £340 from a cake stall.
• George Spencer Academy School sent in a donation of £500 raised from a cake bake day.
• Paul Paling sent in £200 in lieu of sending Christmas cards.
Steven Yates organised a charity football match and raised £419.81.
• Mar tin Attewell raised a total of £606.52 when taking part in the Great North Run 2016.
• Julia Yorston sent donations totalling £439.70, including £279.70 raised at a craft sale at Queen Margaret University, £50 donation from Eleaner Thompson and £110 from Grantully, Logierait and Strathtay Church of Scotland Coffee Group.
• Sylvia Vois sent donations totalling £400 raised by the congregation of the Holy Cross Church.
• Fraser Yorston took part in Going Sober in October and raised £380.
• Julia McBeth sent in £144 collected from saving £2 coins over the last year.
Dionne and Craig Young sent a donation of £120 on behalf of Mr W Fanworth and Mrs Wendy Whitbread.
• Pamela Adams took part in Sober September and raised £120.
• AFD Sof tware Ltd donated £500.
• Jim, Odie and Lochlainn Appleby sent in a donation of £720 raised through taking part in various swimming events.
• Dr Anderson sent in a donation £100.
• Annette Brown at Application Solutions (Safety and Security) Ltd sent in a donation of £4,000.
• Simon Abdel-Nour sent a donation of £150 on behalf of the Antiochian Orthodox Society of Britain.
• Niall Armsden took part in various races and marathons and raised £130.
• Adrian Thompson at Aspen Pumps Limited sent a donation of £150, from the staff, in lieu of sending Christmas cards.
• Bablake Senior School sent in a donation of £543.15 raised through various fundraising activities.
• Charlotte Baldwin sent donations totalling £186.55.
• Ballyclare High School sent a donation of £5,000.
• Barclays Bank sent in a matched giving donation of £1,000 in respect of the INTU Christmas wrapping event.
• During 2016 the homeowners at Barnes Wallis Court in Howden held monthly charity coffee mornings and raised £128.
• David Blood at Capita MPS Birmingham sent a donation of £450.
• Beazley Management Ltd sent in a donation of £250.
• Chemane Brier took part in a year of marathons and raised £165.50.
• Marc Bright took part in an Alps climbing challenge and raised £1,410.45.
• Bruern Abbey School sent in donations totalling £1,205.90, including £1,005.90 raised from their Christmas fayre.
• The members of Burdett-Coutts Lodge No 1278 donated £300.
• Cat Burns took part in various 2016 challenges and raised £256.40.
• Cardinal Newman College sent in a donation of £122.10.
• Dr Carpenter sent in a donation of £272.36 from Turtle Tots, South West Wales.
• Catherine Haw at Cox Automotive sent in a donation of £100 raised through a company fundraising event in the summer.
• Chipstead Lodge No 5463 sent in a donation of £1,931.30.
• Jennifer Davies has sent a donation of £614.48 raised by the students of Clacton Coastal Academy.
• Clacton County High School sent in a donation of £499.
• Claire and Niki took part in an Everest Base Camp Trek and raised £2,565.
• Russell Clarke raised £2,000 from An Evening with Sean Yates, which included the auctioning of a signed and framed Bradley Wiggins team jersey.
• Coleraine Psychology Society sent in a donation of £100.
• Community Paediatrics, Stafford, sent in a donation of £170.57 raised through a Christmas jumper day.
• Co-operative Bank Savings Services sent in a donation of £143 raised through various events in 2016.
• Gareth Crump sent a donation of £100 in thanks for a screening.
• Noel Curtis took part in the Coast to Coast in a Day event and raised £695.
• Irene Gibson sent in a donation of £350 from Derryvullen North & Castle Archdale Women’s Group.
• Joanna Denton has sent a donation of £389 raised by the Di Voci Choir from a concert retiring collection, a raffle and carol singing.
• Gaven Dhanoa donated £100.
• Don McQueen Office Interiors sent in a donation of £200.
• Robin Selmes sent in a donation of £311.15 following a Christmas event on behalf of Dorset Gardens Methodist Church.
• The Duke of Kent School took part in various fundraising activities and raised £211.25.
• Kyle Durman took part in a skydive and raised £150.
• EnQuest PLC have sent a donation of £4,000 in respect of the 2016 Greenie Chart funds.
The Thistle Alpha platform chose CRY as one of its charities to raise money for during the EnQuest 2016 Greenie Chart campaign. CRY volunteer Pete McAvoy attended the Aberdeen office on Wednesday 25th January, to accept the donation and have photos taken.
• Jennifer Emms took part in the Budapest Marathon and raised £482.30.
• Marilyn Olding nominated CRY to receive a donation of £400 from Epsom MG Owners’ Club.
• Fairhaven Methodist Church have sent a donation of £150.27 collected at a service over the Christmas period.
• Rachel Farrelly sent a donation of £100 in appreciation of the Spence family attending a screening at St George’s Hospital.
• James Fernie took part in the Nantwich YFC Triathlon and raised £909.
• First Ballymena Presbyterian Church sent in a donation of £350.
• Marc Fitzgibbon took part in the Titan Brecon Half Ironman and raised £105.
• Gill Ford sent a donation of £1,400 raised at the Duffield Annual Good Friday Charity Football Match.
• Paul Furner has sent a donation of £150 as thanks for screenings held at St George’s.
• Jane Gransden sent donations totalling £135, including £45 from the sale of art and £90 from tearoom refreshments.
• Sam Green donated £100.
• Nicholas Gordon sent in a donation of £226.90 raised from a recent Carols in the Community service at St Luke’s Church, Millfield.
• George Hale completed a skydive and raised £507.
• Alexander Halliday donated £500.
• Laura Hannigan donated £200 in appreciation of the screening her son attended at St George’s Hospital.
• Rod Hardy has sent in a donation of £2,000 from Palladian Publications Limited.
• Amy Frankland sent in a donation of £1,495 raised at the Hare & Hounds Charity Ball.
• Sarah Legrove and Lynn Fedarb sent in a donation of £500 raised through the Hatfield Police Station tuck shop.
• Nigel Hough sent in a donation of £1,500 in lieu of Helmores UK LLP sending Christmas cards.
• Pamela Brind donated £120 raised from Hilden Ladies Probus Christmas Lunch Raffle.
• Will Hinitt took part in the Snowdon Marathon and raised £163.
• Mike Hutchinson sent a donation of £200 raised by the U16 High Lane Football Club boys and parents.
• Gill Baxter at High Wycombe Tangent Club has sent a donation of £100 raised in lieu of sending Christmas cards.
• Paul Horner sent a donation of £100 raised in lieu of corporate gifts.
• Maureen Hulbert took part in the Tough Mudder Scotland and raised £210.
• Kelly James took part in the Manchester Half Marathon and raised £180.
• Lyn Kesterton sent in a donation of £200 raised through the Tamworth based women’s barbershop chorus, Barberama, singing at a private event.
• Sajan Khosla took part in the Ironman Staffordshire 70.3 and raised £380.
• Catherine de Kiewiet at Circle Research Ltd sent in a donation of £200.
• Andrew Knowles took part in a nine month charity challenge and raised £255.
• Jane Krish donated £100.
• Lady Lumley’s School organised a nonuniform day and Christmas fair, raising £467.07.
• Richard Law sent in a donation of £100 in lieu of sending Christmas cards.
• Longsands Academy sent a donation of £286.78 raised through a sponsored silence.
• John Lundy sent in a donation of £1,816.32.
• Paul Main climbed the Matterhorn and raised £710.
• Marks & Spencer donated £500.
• Gardiner McAuley sent a donation of £100.
• Kerry McCarthy MP sent in a donation of £100 in relation to a recent research project.
• Justine McCoy took part in Dry January and the York 10K and raised £1,021.33.
• Jack Milligan completed a skydive and raised £100.
• Margaret Mortlock sent a further donation of £956.46 raised in respect of Pfizer’s dress-down day.
• David Murray took part in a Tough Mudder and raised £200.
• Abigail Nancarrow took part in G-Forces Touch Rugby’s Christmas Tournament and raised £170.
• New Forest Hockey Club sent in a donation of £307 raised through fundraising activities.
• The Olive Lounge tapas restuarant in Rotherham sent in £250 raised through customer donations and matched funding by the restaurant, in respect of CRY being nominated as charity of the month.
• Lisa Owen sent in a donation of £110 raised from a quiz.
• Daisy Palmer sent a donation of £244.50 raised by fundraising activities held by the Methodist Women at St Andrew’s Methodist Church.
• Isabelle Peters sent in a donation of £363 raised at a Christmas concert.
• Will Pettipher sent in £1,585 raised through riding from the English Channel to the Mediterranean Sea.
• Lorraine Phillips sent a donation of £1,001.11 raised by five young musicians and their accompanist who performed classical music, opera and carols at a Christmas concert for the local community.
• The Premiere League sent in a donation of £500 in lieu of sending Christmas cards. CRY was nominated by Max Cramner-Brown.
• The Queens Hotel in Bournemouth sent in a donation of £500 raised through a Christmas raffle.
• RBS Global Finance Services sent in a donation of £400 raised from the #Givingtuesday movement.
• Mar tin Reed took part in the Ironman UK and raised £656.20.
• CRY Representative Ruth Lowe collected a donation of £1,158.92 from RBS Bolton, raised from various
• CRY Volunteer Melanie Webster collected a cheque donation of £130, presented to her by Northern Norwich Scout District, raised through collections made at a St George’s Day Service and parade.
fundraising activities including a ‘dress in red’ day, a tombola, a cake sale, a competition and raffle.
• Ashley Roberts donated £100.
• Roundhay School sent in a donation of £100.
• Andrew Russell took part in the Harewood House Sprint Triathlon and raised £855.
• Diane Russell sent in a donation of £100 raised from a book sale.
• Mr Russell donated £125.
• Helen Scutcher sent a donation of £100 in thanks for a screening.
• SKF UK Limited sent a donation of £100 from their employee charity fund.
• Sarah Shaw sent in a donation of £200.
• ShareGift sent in a donation of £2,500.
• Slater & Gordon (UK) LLP donated £250 on behalf of a client.
• CRY Representative Jeff Markham sent in a donation of £300 from the South Woodford The Grove division of The Townswomen’s Guild.
• Marie Spires sent a donation of £398.94 raised from a cake sale, quiz night and a donation from Cheshire league umpires.
• Starbucks sent a donation of £1,000 raised from the ‘Starbucks Red Cup Cheer 2016’ campaign.
• Stobart Energy employees and their family members took part in the Three Peaks Challenge and raised £1751.13.
“The team consisted of 20 Stobart Energy employees and family members who completed the three peaks challenge in less than 24 hours. It was a gruelling challenge but we all enjoyed it and are planning on another event later on in the year.” George Corden
• Tim Butt and Steven Jones sent in a donation of £600 raised in sponsorship from the members of the Swansea Trotter Alumni Organistaion taking part in the annual 360 Marina 5km.
• Dennis Tailor sent in a donation of £2,156.06 raised through the ‘Blud Sweat ‘n Gears’ event.
• Peter Taylor sent a donation of £500 in recognition of Penny Criddle’s talk to the Moose International Exeter Lodge.
• Simon Taylor sent in a donation of £250.
• Tekdata Interconnections Limited sent in a donation of £136 raised from the raffle of a Christmas hamper.
• Tesco Charity Trust sent in a donation of £235.68.
• CRY Representative Dave Thomas held a bucket collection at Plymouth Raiders Basketball Club and raised £266.98.
• Michael Thomas completed the Big Ride 4 and raised £379.99.
• Tormead School held various fundraising activites and raised £1,413.
• Hilar y Turner took part in a sponsored walk and raised £438.
awareness for the chosen charity as possible.
This year, Cardiac Risk in the Young was chosen. Not only is CRY a charity that numerous members of the team can relate to on a personal level, it is one which we believe holds an inspiring and worthwhile ethos. Prior to the gala itself, the team organised a bake sale, a pub quiz, as well as a 5km sponsored fun run from one side of Exeter to the other – just wearing our swimsuits! These activities helped to get the word out to other students at the University and helped to get the ball rolling for raising funds prior to the competition itself. On the day of Varsity, we charged participants and spectators £4 for a ticket to watch the impressive swimming performances, and also
• University of Exeter Swimming Club sent in a donation of £799.68 raised through a bake sale, 5km sponsored run, pub quiz and a swimming gala.
“The University of Exeter Swimming Club (EUSC) proudly hosted 6 teams to compete in their Varsity 2017 Competition! These included Bath, Bristol, Falmouth, EUSC A Team, EUSC B Team and Exeter Alumni/Triathlon Club, where all teams were out to emerge victorious after the afternoon of competing. Varsity is an annual tradition for the University swimming team whereby every year the members of the club choose a charity that holds significance for them, and through the lead up to and at the actual swimming gala itself, raise as much money and
held a raffle which featured prizes donated by generous local businesses. We would like to take this opportunity to thank, on behalf of the entire EUSC, all the local shops in Exeter who donated prizes to our raffle – they were greatly appreciated.
The gala itself was thoroughly enjoyed by all members
of the club who participated and also helped with time keeping or running the raffle. Not only were there spectacular performances in the individual events, all
teams proved strong in the relays as well – both serious ones and the infamous t-shirt relay. It was a close call, but in the end Exeter A were able to defend their title and emerge as winners of Varsity 2017!
Thank you so much to everyone who worked hard to get sponsorship, and of course to those who sponsored us too – as well as the charity itself for working so hard to inspire others to get out there and make a difference.” Eliza Gilchrist, General Secretary 2016/17
• Waldegrave School sent a donation of £141 raised through various fundraising activities.
• Mike Waywill took part in the ‘Lift & Meat’ event and raised £890.
• Mark Webster donated £500.
• Katie Welsh sent in a donation of £300 raised from a charity Zumba class.
“I’m a 23 year old Zumba fitness instructor and, since being recently diagnosed with a heart condition, I’ve been supported by CRY and the myheart network. I recently put on a CRY Zumba class to raise money for the charity.”
• West Yorkshire Cross Country League sent in a donation of £100.
• Wetherby Pre-Peparatory School sent in a donation of £2,069.
• Wombourne Parochial Church Council sent in a donation of £300.
• Rev’d Paul Finlinson MA sent in a donation of £192.96 raised from collections held at Worksop College Chapel.
• Paul D’arcy sent in a donation of £150 on behalf of the members of Yeovil Olympiads Athletic Club.
Please contact the fundraising team on 01737 363222 or email events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events visit www.c-r-y.org.uk/category/upcomingcryevents
All participants in mass-participation events who contact the CRY fundraising team (whether they have their own place or a CRY charity place) will receive a welcome pack containing sponsor forms, information, helpful tips and either a T-shirt or vest (depending on the type of event).
September 2
The Highland Perthshire Marathon and Half Marathon run or cycle event has built up a reputation for being a superbly organised, great value and friendly event. 2017 will be the 5th running of this great event with many people returning year after year. The course is a 13 mile loop which takes you through stunning scenery. CRY has places for this event so if you would like to register or find out more information please contact us.
September 10
The Great North Run is firmly established as the world’s greatest half marathon. CRY has a limited number of places available for the Great North Run and welcomes any own place runners who would like to join the CRY team.
October 7
Join us on the 8th CRY Durham Walk. The 8km (5-mile) route is suitable for all and passes along the River Wear and through the beautiful city of Durham, taking in views of the medieval cathedral. Online registration before the event is £12 per adult (16yrs+), or £15 per adult on the day. Children aged 16yrs and under can take part for free, but must be accompanied by an adult.
October 8
The Royal Parks Foundation Half Marathon takes place each October, starting and finishing in Hyde Park. Over 16,000 runners take part in the
13.1 mile route through central London, taking in the spectacular sites of the capital and the beautiful Royal Parks. CRY welcomes any own place runners who would like to join the CRY team.
October 15
This brand-new 26.2-mile event will start at Alexander Stadium, the home of British Athletics. The course will then take in some of the city’s most iconic landmarks before finishing in the city centre. CRY has a limited number of places available for this event and also welcomes any own place runners who would like to join the CRY team.
The Spartan Race series integrates obstacles with the natural terrain to create the best racing experience possible. There are three levels of adult races, as well as a range of races for children. CRY has places for these events so if you would like to register please contact us.
For further details, please visit http://www.c-r-y.org.uk/skydive/
December 3
A choice of a 5K or 10K route, both held in Victoria Park. You will pass carol singers, reindeer-costumed Christmas folk, Santa’s grotto and all sorts of festive fancies. All runners will be dressed in free Santa Costumes! CRY has places for this event so if you would like to register please contact us.
March 25
2018
The London Landmarks Half Marathon is a brand new, closed road, central London run. It is the only half marathon to go through both the City of London and City of Westminster. CRY welcomes any own place runners who would like to join the team.
April 15
The Brighton Marathon is one of the UK’s favourite 26.2-milers. With a stunning backdrop in one of the country’s most vibrant cities, the race gets bigger and better every year. CRY has places for this event so if you would like to register please contact us.
Marathon 2018
April 22
CRY has a limited number of charity places available for the Virgin Money London Marathon 2018. Demand always exceeds the number of places we have available so please apply as soon as possible. We also welcome any own place runners who would like to join the CRY team.
May 5
The event is held on the Island’s stunning coastal path. Past the famous Needles, Cowes at half way, on and right around the Island for a full 106km – with spectacular coastlines, dramatic white cliffs, sandy beaches. CRY has places for this event so if you would like to register please contact us.
By fundraising for CRY you will be helping to:
• subsidise CRY’s national cardiac screening programme
• fund CRY’s bereavement support programme to provide counselling and support to affected families
• support research into young sudden cardiac death (YSCD)
• develop the myheart Network to support young people living with cardiac conditions
• provide all CRY literature and information free of charge
• develop the CRY Centre for Cardiac Pathology (CRY CCP), and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology
The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD.
Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, sponsor forms and other resources.
If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.
Visit www.c-r-y.org.uk/charityfundraising-challenge-events for more information or contact the CRY office for a fundraising ideas pack.
The urgency of CRY’s mission and the quality of our work has compelled many high-profile personalities to give their time to become CRY Patrons. For more information visit www.c-r-y.org.uk/about-us/patrons
Sir Ian Botham OBE Honorary President of CRY
“It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.”
Rob Andrew MBE
Clive Clarke
Evans
Hoey
Key
• John Barrowman MBE
• Jack Clifford
• Jeremy Bates
• James Cracknell OBE
• Baroness Ilora Finlay
• John Inverdale
• Gary Longwell
• Simon Halliday
• Tom James MBE
• Pixie Lott
Professor William McKenna
Packer MBE
Scott
MBE
There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we also accept credit/debit card donations over the phone.
For further information please call the CRY office on 01737 363222 or visit www.c-r-y.org.uk/donations
All your help is greatly appreciated.
1. CRY Update magazine
Postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Founder; supporters’ fundraising; articles about screening, myheart, research, pathology, raising awareness initiatives, massparticipation fundraising events; and much more.
2. CRY enewsletter
Monthly email newsletter; 3 emails per year with links to the online version of the Update magazine; plus occasional emails about major CRY events and initiatives.
• Ben Brown
• Nick Easter
• Kathryn Harries
• Pat Jennings
• Emily Maitlis
• Lee Mears
• Sir Steve Redgrave CBE
• Roger Taylor MBE
•
• Jonny
• Michael
OBE
KSG
• Rob
• Graeme McDowell MBE
• Bill Neely
• Lawrence Okoye
• Vincent Regan
• Professor Gaetano Thiene
• Andrew Triggs-Hodge MBE
Alison Waters
• Matt Wells
• Andrew Trimble
• Ray Wilkins MBE
•
• Phil
• Joe Root
• Andy
• Gregor Townsend
• David Walliams
• Sir Clive Woodward
If you would like to subscribe to – or unsubscribe from – either of these mailing lists, please let us know:
• Complete the online form; www.c-r-y.org.uk/contact-form
• Call the CRY office; 01737 363222
•
OBE
• Email the CRY office; cry@c-r-y.org.uk
When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD).
Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions.
These conditions include hypertrophic cardiomyopathy (HCM) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS).
CRY aims to reduce the frequency of YSCD through raising awareness amongst the general public and medical community, providing expert cardiac pathology, improving early diagnosis through screening, supporting young people diagnosed and funding research.
1 in 300 young people CRY tests will have a potentially lifethreatening heart condition.
CRY believes cardiac screening should be available to all young people aged between 14 and 35.
CRY also works to guide and support families and close friends affected by YSCD. We provide information to explain what the coroner does, bereavement support, help with NHS referrals and advice on the procedures that usually follow a YSCD.
In 80% of cases of young sudden cardiac death there are no prior symptoms of a heart defect.
CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge.
For detailed information about cardiac conditions and CRY’s range of literature visit www.c-r-y.org.uk/ medical-information
