Update Magazine 90

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Research News Whenever a donation is made to CRY’s core funding, approximately 25p in every pound will go towards CRY’s research programme. Some families have chosen for all of the funds they raise to go directly to research; and many families who are raising funds specifically for screening, also provide support to the research programme when possible. Thank you to everyone who is helping to support CRY’s research, your support means we can work to train the next generation of specialist cardiologists in inherited cardiac conditions, and transform our understanding of the causes and prevention of young sudden cardiac death. The support CRY has received for research between 2020 and 2022 has been incredible. In 2022 CRY received significant contributions to support research from the following memorial funds: •Tiffany Andrews •Nathan Butler •Tom Clabburn and Claire Prosser •Bruce Cousins •Daniel Lee Duncan •Ashley Goodwin •Adam Green •Matthew Hesmondhalgh •Charlie Ibrahimi •Keiran Joyce •Nina Jelen •Stephen Lamb •Jamie Loncaster •Alan Lumley

•Steven McKay •Rosie Mitchell •Jonathan Morgan •Taylor Panton •Rebecca Phillips •Olivia Raby •Hamish Ross •Suana Saro-Wiwa •Gary Stewart •Natalie Stewart •William Thomson •Fraser Vaughan •Neil Ward •Neil Wickers •Daniel Young

In 2023, between January and May, we have received further contributions from the following memorial funds: •Daniel Lee Duncan •Joe Kellogg •Alan Lumley •Rosie Mitchell •Natalie Stewart •Fraser Vaughan For more information on CRY’s most recent research publications go to: www.c-r-y.org.uk/research. Here you will see interviews with CRY Research Fellows, links to the research publications (either the abstracts or the full articles) as well as links to short films and presentations by our experts including Professors Sanjay Sharma, Mary Sheppard and Michael Papadakis explaining the ongoing impact of CRY’s research.

The impact of exercise and physical activity on young people living with a heart condition The impact of exercise and physical activity on young people living with a heart condition is an issue that often comes up at myheart meetings or is discussed amongst our members As such, CRY has always been committed to supporting a range of research projects, looking at these issues and striving to gain further understanding about the benefits of physical activity for young people with a diagnosed heart condition, as well as ‘safe’ parameters for exercise. CRY’s Research Fellows have been involved in the publication of a raft of internationally acclaimed research looking into this area and one things remains unanimous across all findings; physical activity is almost always beneficial for overall health and well-being and far outweighs the risks associated with a sedentary lifestyle.

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Issue 90 | January - April 2023

Recently, two important research reviews – spearheaded by doctors who both have an association with CRY’s research programme – have been published in Heart (the journal of the British Cardiac Society) to help ‘unpick’ some of the myths regarding physical activity and inherited heart conditions and to clarify whether exercise really can be the best medicine. Former CRY Research Fellow, Dr Sabiha Gati, is now Consultant Cardiologist at Royal Brompton and Harefield (RBH) NHS Foundation Trust. Dr Gati has also been a huge supporter of myheart for several years, taking on a supervisory role at many meetings. Here, we look at a published review carried out by Dr Gati, entitled; ‘Exercise prescription in individuals with hypertrophic cardiomyopathy: what clinicians need to know’.


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