Research News Every donation to CRY’s core funding helps to support CRY’s research programme. Some families have chosen for all of the funds they raise to go directly to research; and many families who are raising funds specifically for screening, also provide support to the research programme when possible. Thank you to everyone who is helping to support CRY’s research, your support means we can work to train the next generation of specialist cardiologists in inherited cardiac conditions, and transform our understanding of the causes and prevention of young sudden cardiac death.
For more information on CRY’s most recent research publications go to: www.c-r-y.org.uk/research. Here you will see interviews with CRY Research Fellows, links to the research publications (either the abstracts or the full articles) as well as links to short films and presentations by our experts including Professors Sanjay Sharma, Mary Sheppard and Michael Papadakis explaining the ongoing impact of CRY’s research.
In 2023, between May and August, we have received further contributions from the following memorial funds: •Bruce Cousins •Alan Lumley •Scott Cowan •Rosie Mitchell •Oliver Hewitt •Suana Saro-Wiwa •Stewart Howard •Natalie Stewart •Joe Kellogg •Fraser Vaughan •William Lane •Julian Wort
“Our programme today highlights many of the questions that families will have following the sudden cardiac death of a young person”; these were the opening words from CRY’s CEO at the start of the “Medicine and Me” one day conference, held on Thursday June 20th in partnership with the Royal Society of Medicine, at its prestigious Central London headquarters. Cardiac Risk in the Young (CRY) had been invited to host the conference following a competitive ‘pitch’ process, spearheaded by Professor Mary Sheppard. And, the academic event certainly achieved the remit of providing a unique opportunity for delegates (whether in person or watching remotely) to explore the following key pillars; the prevention of sudden cardiac death in young people; a better understanding of the underlying causes; how best to manage a safe yet unrestricted lifestyle for those diagnosed with a condition.
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Issue 91 | May - August 2023
Before ‘handing over’ to the esteemed panel of cardiology and pathology experts, Dr Cox went on to explain the rationale behind the seminar; “We hope that the programme which we have put together for the first part of the session highlights many of the areas that families will need guidance on following the tragedy of a young sudden cardiac death. These initial discussions will take us from “what causes sudden cardiac death”, through to the highly emotive issue of the confusion that can so often surround the coroner service and the cause of death recorded on death certificates. “For almost 30 years, we have supported families as they have navigated this incredibly difficult period, particularly when an ‘official’ cause of death doesn’t convey what they feel has happened in their family and can seem misleading and inaccurate. Such uncertainty can really impact the rest of the family and it’s often only as they start to
