Enable January / February 2024

AN AMAZON 2024 NEW YEAR GOALS ECHO SHOW 5 Disability organisations share their hopes The UK’s leading disability and lifestyle magazine

enablemagazine.co.uk

January / February 2024

I WANT CHANGE Exclusive interview with Shani Dhanda

STATE OF CARE

A DEADLY SURVIVAL MECHANISM

Exploring the link between neurodiversity and eating disorders

Social care system running on empty?

DON’T LEAVE US BEHIND

With screening and prevention severely lacking for disabled people, will we really eliminate cervical cancer by 2040?

The World’s First Truly Accessible Marketplace.

Online shopping designed for everyone, with inclusivity at its heart.

We aspire to help everyone find what they want and need, without hassle or frustration with the world’s first inclusive e-commerce platform.

We will deliver a first-class user experience and service, normalising accessibility standards in the process.

Clothing, Shoes & Accessories

Jewellery & Watches

Toys & Games

Home, Garden & Pets

Simple and user-friendly, free from overwhelming distractions.

The language used is consistently clear and easy to understand.

Accessibility tools that give you options and control to make the site work for you.

Visit our website to find out more information

www.enableall.com

Video Games & Consoles

Welcome We are delighted to share the first issue of Enable Magazine for 2024

T

COVER PRICE £3.00

PUBLISHER Denise Connelly denise@dcpublishing.co.uk EDITOR Siobhan MacDonald siobhan.macdonald@dcpublishing.co.uk EDITORIAL CONTRIBUTORS Jane Hatton Tim Rushby-Smith Alisdair Suttie Kate Stevenson Melissa Holmes Katie Cutforth DESIGN AND PRODUCTION Lucy Baillie lucy.baillie@dcpublishing.co.uk SALES Marian Mathieson marian.mathieson@dcpublishing.co.uk ENABLE MAGAZINE www.enablemagazine.co.uk

DC Publishing Ltd, 198 Bath Street, Glasgow, G2 4HG Tel: 0844 249 9007

WINNER VOTED CONSUMER PUBLICATION OF THE YEAR ©DC Publishing Ltd 2024. All rights reserved. No part of this publication may be reproduced or used in any way without prior written permission from the publisher. The views expressed in this magazine are not necessarily those of DC Publishing Ltd. The publisher takes no responsibility for claims made by advertisers within the publication.

Every effort has been made to ensure that information is accurate; while dates and prices are correct at time of going to print, DC Publishing Ltd takes no responsibility for omissions and errors.

he beginning of a new year can bring a renewed sense of motivation and drive for change. Much of this latest issue of Enable focuses on the many areas in which members of the disability community would like to see progress in 2024, from care provision and visibility in entertainment to the accessibility of cervical screening.

Inside, you’ll also find an exclusive interview with Dr Shani Dhanda on page 8, who Shaw Trust recently named the UK’s most influential disabled person.

Shani discusses some of her impactful work in the community and shares what motivates her most. We also hear from the founders of two incredible charities that help people feel empowered, whether that’s up a mountain or behind the wheel of a race car. Plus, Samantha Renke explores hitting the pause button on life in her latest column on page 27, while Tim RushbySmith highlights the impact that virtual reality games can have on the disability community on page 20.

As we look ahead to the rest of the year, we would love to hear from you about what you’d like to see in Enable throughout 2024. Let us know by getting in touch at the email address below. Until then, we hope you enjoy the January/February issue!

Siobhan

Get in touch

@enablemagazine

Siobhan MacDonald | Editor editor@dcpublishing.co.uk

EDITOR’S PICKS...

24 ADHD MEDICATION CRISIS In the UK, people with ADHD are facing a national medication shortage. We speak to some of those affected.

33 A DEADLY SURVIVAL MECHANISM Melissa Holmes investigates the link between neurodiversity and eating disorders, speaking to those with first-hand experience.

WIN an Amazon Echo Show 5 on page 59

Subscribe to Subscribe today and get the UK’s leading disability and lifestyle title delivered right to your door every two months £15 for one year £25 for two years

Call 0844 249 9007 or visit: enablemagazine.co.uk/subscribe

enablemagazine.co.uk

3

What’s inside

41

8

52

Interview

8 SHANI DHANDA The disability advocate talks exclusively to Enable about the change she’d like to see.

Cover story

42 EMPOWERED EATING How a few simple changes can help you reset your diet.

Health

19 DEALING WITH STRESS Insights, advice and support on how to tackle stress in the new year.

24 ADHD MEDICATION CRISIS We hear from some of those affected by the ADHD medication shortage.

33 DEADLY SURVIVAL MECHANISM Exploring the link between neurodiversity and eating disorders.

4 4

enablemagazine.co.uk enablemagazine.co.uk

38 CERVICAL CANCER PREVENTION Cover The vital need to improve story access to cervical screening for disabled people.

Voices 20 DIPPING INTO VIRTUAL REALITY Tim Rushby-Smith explores how gaming consoles can positively impact the disability community.

27 PRESS THE RESET BUTTON Samantha Renke on slowing down in the year ahead.

Cover story

Finance 55 DECADE OF PIP Marking 10 years of PIP as disabled people’s organisations question what needs to change.

22

Life 11 NATURE’S HEALING We meet the founder of a charity that combines nature and mental health support.

36

66

22 ACCESSIBLE ENTERTAINMENT Meryl Williams reflects on disability representation in showbiz.

28 SWIPE RIGHT The benefits of tailored disability dating services.

31

31 VOLUNTEER WITH GUIDE DOGS Find your new dream role as a ‘puppy raiser’ with Guide Dogs UK. 36 DANCE FOR PARKINSONS How can dancing help people living with Parkinson’s?

41 RECIPE: RED PEPPER BRUSCHETTA PASTA Nathan Anthony shares a delicious slow cooker pasta dish from his new book.

38

46 FREE DAYS OUT Discover some of the best free and accessible days out across the UK. 49 THE DIARY What’s on this January and February?

50 PRODUCT PICKS Mobility aids and kids’ products to help with everyday life.

66 DRIVING INCLUSIVITY FORWARD The charity giving disabled people the chance to become a race car driver.

Spotlight 16 NEW YEAR GOALS Disabled people’s organisations and prominent figures share their goals for 2024.

Cover story

Employment 61 RETRAINING What to consider if you’re thinking about making a change in your career.

62 NEURODIVERGENT NETWORKING Jane Hatton answers your employment questions in her regular column.

64 UNDERSTANDING APPRENTICESHIPS Why apprenticeships can be a great route into your chosen career.

WIN

Motoring

AN AMAZON ECHO SHOW 5 ON PAGE 59

52 REVIEW: NISSAN ARIYA Alisdair Suttie takes the Ariya for a test drive and gives us his verdict.

Care

13 UNVEILING STATE OF CARE We unpack the sombre findings of the latest State of Care report. enablemagazine.co.uk enablemagazine.co.uk

5 5

enable news

News

Autism toolkit launched to help at home

A FREE ONLINE RESOURCE has been launched to help parents and carers support autistic children and young people in the home. Ambitious About Autism launched the ‘quality of life at home’ toolkit to better support parents and carers with everyday obstacles, in response to parent-focused research that identified

a gap in information currently available.

The online resources aim to provide the tools and techniques to help parents and carers covering topics such as the iceberg model, autonomy, nurturing competence, and family conflict. You can access the free online tools at Ambitious About Autism (www.ambitiousaboutautism.org.uk).

DISABLED STUDENTS FACE UNIVERSITY DISCRIMINATION

Women and Equalities Committee warns government to rethink NDS THE WOMEN AND EQUALITIES COMMITTEE warns the UK Government “has not learnt lessons” from concerns raised on the National Disability Strategy (NDS). The crossparty committee of MPs released the first of three reports based on findings from an inquiry into the NDS, describing the scheme as a “list of un-coordinated and largely pre-existing short-term policies”

6

enablemagazine.co.uk

and urged ministers to “work with disabled people to develop the strategy into a ten-year plan with clear targets”. The committee stated that instead of establishing a long-term plan to “transform the everyday lives of disabled people” the Government produced a “disability strategy in name only”, with disabled people and disability organisations having “little to no influence”.

A SIGNIFICANT NUMBER OF disabled students have been told by university staff their access needs are “unreasonable” or “a nuisance”.

Disabled Students UK released its Access Insights Report 2023 which spoke to over 1300 disabled students from 90 universities across the UK. It found that one in five disabled students feel they faced discrimination by university staff.

Among the findings, 43 per cent of students with a mobility impairment felt isolated by the adjustments in place for them, like having to use a separate entrance or sit apart from their fellow students. The report stated that 22 per cent of students felt staff members had said or implied that their accessibility needs were a nuisance or unreasonable.

The report recommends that university disability services provide support on an individual basis, instead of “tick box adjustments”.

Care and support in your own home

“Thanks to the carers from Promedica24 I am able to live my life in the way that I want and achieve my goals. ”- Tom N. Tom was born with cerebral palsy and requires around the clock support. With the help of a live-in carer from Promedica24, Tom now lives independently. Tom says, “If I was giving advice to someone in a similar situation to myself, I would advise them not to worry about their future and try to demonstrate to them that with the help of a live-in carer they will be able to live their lives in the best possible way.”

The right care, at the right time.

As home care specialists, our flexible care options give people the option to remain at home with care, support and companionship.

Contact your local Care Consultant today. care@promedica24.co.uk 0800 086 8686

May 2023

Disability advocate, entrepreneur, TV personality and the UK’s most influential disabled person Dr Shani Dhanda chats exclusively with Enable magazine

“I want change” I

want to help the world. I want change,” demands Dr Shani Dhanda. “I want to help society and to become a role model.” Shani, who you may recognise from appearances on Loose Women and This Morning, is talking to Enable not long after she was named the Most Influential Disabled Person in the UK in Shaw Trust’s Disability Power 100 list. That title is no small feat for a woman who was expected to achieve very little in her life. However, she’s shared speaking stages with Hilary Clinton and Michelle Obama, spoken at the UN, and set up several incredible enterprises all aimed at supporting disabled people.

“I’m advocating for the entire disability community,” explains Shani.

“I’m chuffed with the recognition,

“

8

enablemagazine.co.uk

especially as the first non-white person to be in the number one spot,” she says of topping the Disability Power list. “That means a lot more to me because there are more barriers.

It’s harder to get that recognition.”

ANOTHER WAY

After Shani’s diagnosis of osteogenesis imperfecta – also known as brittle bone disease – at the age of three her mum never let her feel sorry for herself. “Mum would say: ‘You’re different; the world isn’t designed for you. But that doesn’t mean you can’t find another way to do things,” recalls Shani.

Shani has spent her life ‘finding another way’ and using her experiences to help others. She founded the Asian Woman Festival to empower South Asian women and

underrepresented genders through culture, art and conversation. She set up the Asian Disability Network, supporting Asian disabled people to navigate their disability alongside their ethnic and cultural identity. And she’s developed Diversability, a discount platform for people living with conditions or impairments, because – as research and lived experience show – life costs a lot more when you have a disability.

CREATING COMMUNITY

Shani wants to forge the community she never had growing up – to create safe spaces for disabled people to ask questions, share knowledge and combat discrimination.

Becoming a disability advocate was never part of Shani’s life plan: “I went through SEN schooling – no one there

enable

interview

talked to me about going to uni,” she says. “People had low expectations of me, so I didn’t think I could do anything.”

Her first step towards independence was applying for part-time jobs.

“16 was a pivotal age. Until then, I’d never thought about what my adult life would look like,” explains Shani.

“Suddenly I did, and it was my first taste of freedom where my body was cooperating with me and I now had the time to find a job.”

But Shani had no idea about the obstacles she would face in the workforce. Writing her CV, she added a line explaining that she had brittle bone disease, noting that it wouldn’t impact her ability to do a job. “I thought I’d be helping my potential employer,” reveals Shani, unaware how much stigma existed around disabled people in work. “I had no idea it would go against me,” she admits. “I didn’t know that people saw us as less productive or unreliable.”

It was a hard lesson to learn and, after countless knockbacks, Shani took action. “I was rejected from over 100 applications until I removed any mention of my disability,” she explains.

“I thought, what can I do to take control of the situation and create opportunities for myself?” And it worked – after this, Shani was offered an interview and a job.

Shani spent ten years working in events management, and now has many strings to her bow. She works in the corporate sector, advising brands like ITV, the BFI and Virgin Media on disability rights and race equality; she’s been an ambassador for several charities; and her drive to promote intersectionality and inclusion has seen her receive an Honorary Doctorate of Social Sciences. “I never dreamt I’d be speaking on some of the world’s biggest stages,” admits Shani.

REPRESENT

As a regular face on TV, Shani says: “I never saw disabled people in the media. And when I did, I only ever saw white disabled people. I want to make sure that, when we do have disability representation, it’s diverse and authentically represents the

PICS: © SEBASTIAN BOETTCHER; COURTESY

SMASHING BARRIERS

whole community.” She also wants to see disabled freelancers being paid fairly for their time. “If disabled people don’t know their worth or how to assert themselves, then people will take advantage,” highlights Shani. To combat this, she’s launched Fair Dues, a collaborative resource where disabled media freelancers can anonymously share pay rates to combat the many unpaid work requests they receive.

“Everything I’m working on is something I wish existed for me,” adds Shani. “I know it would’ve reduced the loneliness I felt.” Given Shani’s relentless drive, what keeps her going?

“My years of work improving diversity and representation in disability spaces, making our world more accessible and less ableist, have been mainly out of survival,” she explains.

And with Shani’s activism, it’s time to thrive, not just survive.

If disabled people don’t know their worth, or how to assert themselves, then people will take advantage

FOR MORE INFORMATION To learn more about Shani and her work, head to www.shanidhanda.com

enablemagazine.co.uk

9

NEW NEARLY NEW USED HIRE

THE UK’S FAVOURITE WAV SUPPLIER Advance Payment From

£3,345

Electric vehicle now available

The UK’s Most Popular Small WAV

Peugeot Rifter Horizon

™

3-5 Seats

Fast Delivery!* • EasyGlide™ lightweight ramp • Easy-use electric winch • Rear parking sensors & 180° reversing camera Plus model available for additional space

Sleek and Modern Design

• 8” colour touchscreen • Air conditioning • 16” Taranaki alloy wheels

Advance Payment From

£3,345

Ford Connect Freedom ™

3-5 Seats

Fast Delivery!* • Lightweight ramp • Easy-use electric winch • Front & rear parking sensors • 8.25” colour touchscreen

with Applink

• Air conditioning

RS model

• Bluetooth®

Volkswagen Caddy Vista™ Fast Delivery!* Advance Payment From

£3,345

•Lightweight ramp • Easy-use electric winch • Front & rear parking sensors • 8.25” colour touchscreen • Bluetooth® • Air conditioning

5 Seats

HomeStay™ Service†

Renault Trafic Autograph™ Brand New Advance Payment

£9,995

Mobile Service Vans UK-Wide

Prices correct at time of going to press. Images for illustrative purposes only. *Selected models available from order for delivery within four to six weeks.. †Applies to Ford and Peugeot models. Please speak to your mobility advisor for further information.

Call Now to Book Your Home Demonstration 0800 916 3027 or visit alliedmobility.com/home-demo

RE model

• EasyFold™ lightweight ramp • Easy-use electric winch • Front parking sensors • 8” colour touchscreen • Bluetooth® • Air conditioning

5-6 Seats

enable life

Nature’s healing Alex Staniforth fell in love with the outdoors while experiencing depression and struggling to access NHS services. That’s where the seed for Mind Over Mountains was planted

A

lex Staniforth founded Mind Over Mountains with his friend Chris Spray upon realising that it took him longer to access NHS mental health services than it did to climb all 100 UK county tops.

Mind Over Mountains combines the benefits of walking and spending time in nature with therapeutic support from professional counsellors. In partnership with Adventure Uncovered, the project initially began as an impact event before he officially launched the charity with Chris in 2020.

Alex encouragingly dubs the charity the Natural Health Service, offering professional mental health support for people in a safe space as they reconnect with nature.

EXPERIENCE

Alex has lived experience with depression, epilepsy and anxiety which led him towards his career as an adventurer and mental health advocate. “I’ve had epilepsy since I was about nine. I’ve been seizurefree for 15 years now, but the epilepsy was a catalyst for lots of different challenges,” explains Alex.

“I’ve had a stammer all my life. I was bullied badly through school, and I had general anxiety and panic attacks from a very early age, so

It took longer to get the help I needed for depression from the NHS than it did to cycle across the UK

going through school was a really challenging and scary time for me,” states Alex. “I found the outdoors when I was about 14, and that became my way of going through all this and dealing with anxiety.”

Alex is now a record-breaking adventurer and author, who climbed Mount Everest twice as a teenager. With all his achievements and accolades, Alex continues to reflect on the time it took him to access mental support in the UK. “After Everest, I did a challenge called Climb the UK, which involves climbing to the highest points of all the counties in the UK; around 5,000 miles of running, walking, cycling and kayaking over 72 days,” explains Alex. “What really struck me from that journey was that it took me longer to get the help I needed for depression from the NHS than it did to cycle 5,000 miles around the UK.”

Alex Staniforth

MIND OVER MOUNTAINS Mind Over Mountains is more than just walking; it’s a combination of professional therapists and counsellors coming together with mountain leaders and like-minded individuals to make a difference.

Events take place across the UK, and range from one-day guided hill walks to rural weekend retreats alongside trained coaches and counsellors for support.

“You have trained people there who can work through all sorts of issues and challenges, whatever people bring,” enthuses Alex.

“There’s also mindfulness which people can use in their everyday life, with the chance to slow down and notice what’s going on.

“I’m always amazed and inspired by what people can overcome and achieve just to get [help]. That’s always the hardest part.”

FOR MORE INFORMATION Visit Mind Over Mountains (www.mindovermountains.org.uk) for a full list of weekend retreats across the UK.

enablemagazine.co.uk

11

Let our family care for yours We are here to help Our team at Notaro Homes, have a wealth of experience and knowledge, so we understand what a critical time it is for the whole family when considering future care options.

We are always here to talk to you, offer advice and support you through the process.

We are a family run business and have been providing vital care and support to individuals across Somerset for nearly 40 years.

Casa di Lusso

La Fontana

Cedar Lodge

Casa di Lusso Dementia Nursing Care Home, Bower Lane, Bridgwater, Somerset, TA6 4GU

La Fontana Dementia Nursing Care Home, Foldhill Lane, Martock, Somerset, TA12 6PQ

Cedar Lodge & The Limes Care Home, Hope Corner Lane, Taunton, Somerset, TA2 7PB

Call 01278 557100 Fax 01278 557099

Call 01935 829900 Fax 01935 829955

Call 01823 286158 Fax 01823 327730

Aspen Court

Immacolata House

Aspen Court Dementia Nursing Home, Hope Corner Lane, Taunton, Somerset, TA2 7PB

Immacolata House Dementia Nursing Care Home, Portway, Langport, Somerset, TA10 0NQ

Call 01823 346000 Fax 01823 346001

Call 01458 254200 Fax 01458 254201

Call or visit our website to learn more: 01934 422822 www.notarohomes.co.uk enquiry@notarohomes.co.uk

enquiry@notarohomes.co.uk | notarohomes.co.uk | 01934 422822

enable care

UNVEILING THE

State of care

At the end of October 2023, the Care Quality Commission (CQC) – the independent regulator of health and adult social care in England – released its annual State of Care report. We take a closer look

Y

ou can’t give what you don’t have,” says Chris Dzikiti, the CQC’s Chief Inspector of Mental Health. He’s talking exclusively to Enable about the State of Care report, and the need to support the wellbeing of clinicians, support workers and staff in the care sector to provide safe, effective, compassionate care.

“There’s something about how

“

emotionally or psychologically safe staff are to be able to express what they’re going through; to be able to reflect on the challenges they’re facing,” explains Chris. Having that wellbeing support helps carers cope with the difficulties of working in the sector, but it seems to be lacking in some organisations.

We all know the phrase ‘You can’t pour from an empty cup’. Yet, within the health and adult care sector

enablemagazine.co.uk

13

enable care

across the whole of the UK, that cup often seems to be running dry.

When Chris says: “You can’t give what you don’t have,” he’s talking about the welfare of staff. But that phrase could apply to lack of resources and funding, lack of joined-up thinking across involved agencies, or lack of adequate support in the community. Because despite the skill, professionalism and kindness of the caring workforce, there often seems to be… something lacking.

There’s something about how emotionally or psychologically safe staff are to be able to express what they’re going through

SOMBRE READING

“It’s sombre reading,” admits Chris.

“The report is really hard to read.

But it’s also telling a story that people are able to connect with in terms of the challenges we’re seeing in healthcare.”

For the first time, Chris feels this year’s report is more about inequalities than the work of the CQC itself – a shift in focus which throws light onto providers, funding and other key issues, rather than the inspectorate body and its work.

ONGOING INEQUALITIES

One of the stand-out issues from the latest report concerns the inequalities faced by people with autism and/or learning disabilities in accessing and receiving care.

There are around 2,000 people with learning disabilities or autism living as hospital inpatients. Half of them have been in wards for over two years. For someone with sensory issues and impaired communication, a hospital sounds like the worst place to be. And because they’re in the wrong environment, where staff haven’t been fully trained in how to support each individual or there’s a high staff turnover due to agency use, the report uncovered an increased use of traumatic practices like restraint and segregation for people with learning disabilities and autism.

So what’s needed? Clearly an improvement in community provision, as Chris explains: “If you’ve got holistic support around someone in the community, there’s someone who can pick up the early warning indicators. That means the

14

enablemagazine.co.uk

support interventions are earlier – you don’t have someone being in crisis, being arrested and taken into A&E.” With better, integrated provision, you get better outcomes like supported, timely discharge into suitable accommodation with appropriate medical care.

STAFF STRUGGLES

Problems in the care sector were evident long before the pandemic, but the global crisis seemed to bring the issues into clearer focus.

Then the cost-of-living crisis hit, which has had a huge impact on the sector. Local authority funding seems to barely touch the sides of adult social care, people are having to choose between paying their bills or paying for in-home support, and – according to the Sector Pulse Check (independent research carried out by Care England and Hft) – one third of adult social care providers are considering quitting the sector due to increased costs like workforce pay and soaring utility bills.

In feedback to the CQC, one service provider reveals it washes staff uniforms on site and provides staff meals in a bid to help. And the Care Workers’ Charity has been busy too, giving around £1 million per year in crisis grants to care workers in extreme financial difficulties.

The retention and wellbeing of staff – many of whom report feeling overworked, stressed and exhausted – are also becoming a concern. Which brings us full

circle to the complex interweaving threads of funding, provision, support and societal factors.

Care England has released a forward-thinking roadmap towards a sustainable vision for adult social care, with key points of action for the next government. Care for our Future includes proposals like zero-rate VAT for welfare services in England, the introduction of a minimum care wage, and a £10bn annual funding boost.

The Labour Party promises a prevention-led, ‘home-first’ approach to care that will also end the social care workforce crisis, while the Conservatives continue to focus on an integrated approach to care that puts patients, not process, at the core of the NHS. Liberal Democrat Health Spokesperson Daisy Cooper MP said: “This damning report shows the devastating impact of the Conservative government’s neglect of the NHS and care on people’s lives.”

GLIMMERS OF HOPE

Progress requires change and the report does offer hope by outlining positive changes in the sector. These include blended roles offering joined-up care, pilot services to provide night time home support after hospital discharge, and new assessments of local authority provision.

The State of Care Report serves as a call to action, urging stakeholders to prioritise the needs of individuals with disabilities to combat long-established inequalities. There’s a long way to go towards a more inclusive, compassionate, and high-quality care environment, but the CQC’s unique position means it can inspire organisations to improve and initiate innovation towards a person-centred approach in the community.

FOR MORE INFORMATION Visit Care England (www.careengland.org.uk), or the Care Quality Commission (www.cqc.org.uk).

NEW YEAR GOALS For many, the new year is a time for resolutions, fresh starts and a renewed sense of motivation. Friends of Enable and prominent figures in the disability community share their goals for the year ahead Carol Boys

Nick Moberly

CEO of Down’s Syndrome Association

CEO of the MS Society

I’m really excited to see the impact that our Listen Include Respect (LIR) Inclusion Advisers, Catherine and Joe, will have in 2024. They will be developing and delivering training to support government departments and linked external agencies to transform processes to make sure they are accessible and inclusive. We’ll also be involving more people who have Down’s syndrome in the work of the DSA at all levels, and on World Down Syndrome Day (21 March) we will be joining with organisations across the world to #EndTheStereotypes.

Diane Lightfoot

CEO of Business Disability Forum

Jolanta Lasota

CEO of Ambitious about Autism Most autistic young people want teachers who support them to understand their needs better.

95% of autistic young people told us they think teachers need training on autism. This would lead to a reduction in school exclusions, improved mental health and better outcomes when they leave education. We hope that in 2024, the government will commit to making autism training compulsory for all education staff, so children and young people can thrive and realise their ambitions.

16

enablemagazine.co.uk

Many of the barriers that disabled people experience, both when looking for work and once in a job, are created by policy making which is not joined up and doesn’t involve employers and disabled people themselves. In 2024, we want to see employers and disabled people at the heart of the conversation, so that barriers are removed from the get-go. Only by including everyone can we create workplaces and employment opportunities that work for everyone.

It’s been a difficult year for many people with MS, so in 2024 we want to continue campaigning on the issues that matter to our community – from improving access to disability benefits to strengthening neurological services. Last year we launched our ground-breaking Octopus trial, which could help us find life-changing new treatments for progressive MS up to three times faster. In 2024, we’re excited to be opening even more Octopus trial sites in locations across the UK.

Euan MacDonald MBE Founder of Euan’s Guide

Euan’s Guide’s goals for 2024 focus on our community. We want to hear from even more people who wish to share their experiences of disabled access. If you’ve never reviewed before then head over to Euan’s Guide to get started. We have tens of thousands of people who use the website every month to find and share disabled access information and we regularly get told that just one review can give someone the confidence to visit somewhere new. We hope to welcome more Toilet Warriors to help make accessible loos safer.

enable

spotlight Ellie Middleton

Author of Unmasked My hopes for the year ahead are to continue my unmasking journey and find better ways of working with my brain rather than against it. My autism and ADHD diagnoses brought me so much validation, but I still frequently find myself struggling with burnout in a neurotypical world. I’m hoping 2024 can be more restful, balanced, and help me discover an even more authentic Ellie.

Jackie O’Sullivan Acting CEO of Mencap

As we look to 2024, we continue to campaign for Homes not Hospitals. Thousands of autistic people and people with a learning disability are detained in mental health units, with many subjected to physical restraint, inappropriate use of antipsychotic medication, solitary confinement, and increased risk of abuse and neglect. We need investment in community support and Mental Health Act reform to ensure people with a learning disability and/or autistic people don’t get trapped in mental health hospitals.

Working with families, charities and MPs, we strive to bring an end to this human rights scandal.

Lisa Saunders

Operations Manager for Carers First

PICS: © ARON HOSIE; SUSANNAH FIELDS; PAUL CARTER ; NICKY JOHNSTON; MIKE ABRAHAMS

In 2024, I hope that our work will lead to more people being recognised as unpaid carers. I hope they will contact Carers First so we can help them to benefit from our exceptional support services, which are designed to enhance carers’ wellbeing.

Mike Adams

CEO of We Are Purple As Purple Tuesday becomes the Accessibility Partner for the National Lottery (from 1 February 2024), I hope it will provide a real springboard to raise awareness and promote understanding about all things disability. And change the disability conversation.

Samantha Renke

Disability activist and Enable columnist My hopes and goals for the year ahead is simply this: take a breath! I tend to always be in a rush, like a ticking timer is about to go off in my chest, irrespective if I have somewhere to be or something I should be doing. So, this year, I’m going to allow myself to relax, which I discuss more in my column on page 27.

FOR MORE INFORMATION See the full list of interviews with prominent figures and disability organisations at Enable Magazine (www.enablemagazine.co.uk).

enablemagazine.co.uk

17

enable health

NAVIGATING

STRESS

The financial burden of living with a disability, including managing symptoms and facing barriers put in place by society, can lead to high amounts of stress. Learning to spot the signs and understanding when and where to seek support can help

L

iving with a disability, or caring for a disabled loved one, can often come with unique stresses. These are on top of the daily pressures of the cost of living crisis and other events affecting the nation. High levels of stress can be especially prevalent in the winter months, when bills are higher due to the cost of running essential equipment.

Understanding the causes and symptoms of extreme stress can be a valuable tool in caring for both your physical and mental health.

UNDERSTANDING

The cost of living in the UK continues to soar, placing an immense financial burden on disabled people. Many rely on government assistance and disability benefits to make ends meet.

As prices rise, you might be struggling to cover essential expenses like social care costs, mobility aids, housing adaptations, or medications.

This financial strain contributes significantly to stress levels.

Changes to medication or worsening symptoms can also be emotionally taxing, both for the person experiencing them and the

people who care for them. This can be particularly distressing if it leads to reduced independence.

SIGNS

It’s essential to recognise the signs of stress so that you can access information and support in a timely manner. The NHS Every Mind Matters initiative and the charity Mind offer valuable information on stress awareness and its symptoms. Some common signs to watch out for include increased irritability, anxiety, fatigue, sleep disturbances, changes in appetite, and withdrawal from social activities. Additionally, physical symptoms like headaches, muscle tension, and digestive issues may manifest.

Disabled people are often resilient and accustomed to managing their conditions, making it easy for stress to go unnoticed. However, the emotional and physical toll of prolonged stress can be significant, underscoring the importance of early recognition and intervention.

SUPPORT

In the UK, there are numerous resources and organisations

dedicated to supporting people dealing with stress that is above the levels expected in daily life. Stress Awareness Month, which will take place in April, is an ideal time to raise awareness and access these resources, but they are also available all year round.

Alongside the NHS and mental health charities like Mind, Scope provides disability-specific guidance on managing stress and for dealing with this while caring for disabled children.

Recognising the causes of stress, identifying its signs, and seeking support are essential steps towards managing the challenges it can create in your daily life. Start by considering how stress is affecting your life, if it is exacerbating symptoms of a disability, and informing yourself on where to find support.

FOR MORE INFORMATION To learn more about coping with stress and reaching out for support, contact Mind (www.mind.org.uk), Scope (www.scope.org.uk), or use the resources provided by NHS Every Mind Matters (www.nhs.uk/everymindmatters).

enablemagazine.co.uk

19

enable voices

Tim Rushby-Smith Originally from London, writer, artist and paraplegic Tim Rushby-Smith is now based in Australia. He is the author of two books: Looking Up and Beyond the Break.

Follow Tim on X @trushbys

(VIRTUAL) REALITY CHECK Columnist Tim Rushby-Smith discusses virtual reality gaming consoles and the wider impact they can have on the disability community

V

ideo games sometimes play a bigger role in my household than I’d like.

With two kids, it is not a genie that I can put back in the bottle, especially as I play them myself. I have written previously about the role that these games can play when my chronic pain becomes too much.

Now our house includes a new platform, and it is one that interests me greatly. Virtual Reality (VR) offers an immersive experience that further pushes the envelope in terms of sensory feedback and how we experience the digital world.

Studies have already demonstrated how we can ‘trick’ the brain using something as simple as a mirror to

VR technology is being used in some very interesting projects

20 enablemagazine.co.uk

reduce ‘phantom limb’ pain by offering the illusion of movement. Similar experiments using moving images to represent the movement of paralysed legs have been found to reduce neuropathic pain in some people. I am yet to explore the VR world we now have access to, largely because my son is rather leading the charge; he spends a lot of time using it to spray graffiti onto virtual walls which, as a parent, seems like a better idea than him doing so in the real world.

INNOVATION

VR technology is being used in some very interesting projects that work with neurodiverse participants. The creation of a virtual sensory room as part of a programme in Australia is providing some really encouraging outcomes, offering a wide range of audio-visual elements that participants can interact with, enabling them to control their ‘surroundings’. The virtual room allows visitors to change the colour of the sky, clouds and walls, as well as interacting with objects and creating sounds.

Particularly powerful insight has come from seeing the way non-verbal

participants have used VR to control the world they see and hear around them.

A screen that shows the elements that the participant is interacting with, along with data providing information on heart rate, blood pressure and even eye movement, enables support workers to better understand the elements of their surroundings that participants can use to self-regulate.

LIFE-CHANGING

As with many emerging technologies, there is understandable anxiety over the risk of people becoming further isolated, especially as the real world can feel quite overwhelming. This is undoubtedly true when we live through a period of considerable anxiety about the future.

Many people living with disability know from personal experience how technology can change lives, by providing tools that enable us all to participate more fully in ‘the real world’. How the virtual impacts on our everyday lives remains to be seen, and the technology is certainly in its infancy, but there is real potential for it to improve reality for many people.

Advertisement feature

Everyone deserves to travel Discover our top tips when travelling with mobility issues

S

pring is fast approaching, and many of us are looking forward to another year of holidays and travel!

Specialist Travel Insurance provider AllClear understands that there are extra things to think about for holidaymakers with pre-existing medical conditions. More than half of their customers (58%1) are living with two or more medical conditions, so they’ve put together five top tips for travellers.

1) Research accessible accommodation in each destination you’re considering: Easier access to your hotel reduces stress and makes your trip more enjoyable.

2) Get in touch with your airline and travel agent 48 hours before flying: Discuss your needs regarding transportation to, from and throughout the airport with them.

3) Talk to your doctor to ensure you have enough medication: Arranging this before your trip will give you peace of mind on your travels, and it’s worth packing a little extra in case of delays.

4) Bring the necessary medical proof when packing medical equipment: Having this to hand in advance will help security checks to run smoothly 5) Sort out comprehensive Travel Insurance so you can travel with peace of mind: With 14.6 million adults living with disabilities in the UK, finding the right Travel Insurance cover is vital when planning your holiday.

PLUS AllClear will make a contribution of up to 20%* of your premium to Motability Enterprises Ltd. So, if you’re planning a spring getaway, or a trip later in the year, why not go with the UK’s most trusted Travel Insurance Provider3.

If you choose Travel Insurance with AllClear, introduced by Motability Enterprises Limited, you’ll enjoy the following benefits: 24/7 English speaking emergency medical helpline Up to unlimited cover for medical expenses and repatriation to the UK Up to £25K cancellation cover2 Cover for travel delays and abandoning your trip Up to £3K personal belongings cover

Find out more Call 0808 164 1807 or visit www.allcleartravel.co.uk/motability 1 Based On AllClear Annual Survey, January 2023. 3,901 responses. 2 Providing you have purchased a policy that includes cancellation cover. 3 Based on Trustpilot reviews of all companies in the Travel Insurance Company category that have over 40,000 reviews as of September 2023.

AllClear and Motability/ Motability Enterprises Limited Regulatory Declarations. *AllClear will make a contribution to Motability Enterprises Ltd of up to 20% of your premium. These funds are used by Motability Foundation to help disabled people with their personal mobility. IPT - Insurance Premium Tax is charged at 20% and is included in the total premium that you pay. Motability Enterprises Limited (Registered No. 1786053 England and Wales) is a wholly owned subsidiary of Motability (a Registered Charity in England and Wales No. 299745 and in Scotland No. SC050642), both of which have their registered office at Warwick House, Stadium Way, Roydon Road, Harlow, Essex CM19 5PX. Motability operating as Motability Foundation.Motability Enterprises Limited is an Introducer Appointed Representative (Firm Reference Number 538055) of AllClear Insurance Services Limited.

AllClear Travel Insurance is arranged by IES Limited, which is registered in Gibraltar company number 117274. Registered Office: 1st Floor, Portland House, Glacis Road, Gibraltar, GX11 1AA. IES Limited is licensed and regulated by the Gibraltar Financial Services Commission number FSC25393 and trades into the UK on a freedom of services basis, FCA FRN 824283. AllClear Travel Insurance is administered by AllClear Insurance Services Limited, registered in England No. 04255112.

Registered Office: AllClear House, 1 Redwing Court, Ashton Road, Romford, RM3 8QQ. Authorised and Regulated by the Financial Conduct Authority firm reference number 311244. AllClear is a registered trademark.

enable life

Meryl Williams found fame on The Traitors in 2022. She discusses her experience filming the BBC show while speaking out on how to improve diversity in the entertainment industry

Accessible entertainment was The Traitors. As an individual I was completely blown away,” remembers Meryl. “I take my hat off to them. I think they embodied what representation is meant to be like. The cast had an age range of 21 to 75 and included people with visible and non-visible disabilities.

“I came out of that show feeling incredible. I wanted to go back in. Every single day when I was on that show, I felt so, so loved and so represented.”

HISTORIC

BREAKING BARRIERS

Meryl was nominated for the BAFTA Scotland’s Audience Award becoming the first person with dwarfism to do so, stating she was “honoured” by the experience. Unfortunately, Meryl missed out on taking the accolade home, but still branded the night one of the best of her life. “I understand The Traitors won a UK BAFTA, but that

Every single day when I was on that show, I felt so, so loved and so represented

22 enablemagazine.co.uk

Meryl is determined to prove that disabled people can live a normal life, doing everything non-disabled people can.

“There was nothing I couldn’t do, which was so good,” enthuses Meryl.

“They were so accommodating, but not obvious. I think when you have a visible disability, you want to be treated the same as everyone else.

“I’m constantly proving to people that I can just do the exact same as what you can do,” adds Meryl. “Maybe I’ll do it a little differently from the way you’ll do it, but I’ll still be able to do it. It might take me a bit longer, but I’ll still do it. I always say no is not in my vocabulary.”

While it is great to see more diversity and disability representation on-screen, trolling is a huge issue that people

in the public eye will deal with and something Meryl is unfortunately familiar with.

“The first couple of times, I was heartbroken by what [people] said about me, but then I found a resilience and built up a shield,” admits Meryl.

DISABILITY ON-SCREEN

Following her experiences, Meryl is focussing on building her career in the entertainment industry and dreams of having her own talk show. While things are moving in the right direction, Meryl is determined to make disability inclusion in TV the standard.

“There are so many people out there that have been in their roles for like 40 years, which I get, but there’s not that many job opportunities,” emphasises Meryl. “I definitely think more visible disabilities on TV are needed, and secondly, making it normal to see someone who’s disabled doing an everyday task or someone presenting who is disabled and not talking about their disabilities.”

FOR MORE INFORMATION To keep up to date with Meryl’s career, follow her on Instagram @merylwilliams or TikTok @merylwilliamsx

PIC :© BBC PICTURES

M

eryl Williams was one of three winners who took home a £33,000 cash prize on The Traitors in 2022. Meryl is originally from South Africa but lives in her Edinburgh flat with her three Pomeranians. At a young age, Meryl was diagnosed with achondroplasia, which is the most common type of dwarfism, and moved to the UK shortly after.

4 4

Based on the Ford Grand Tourneo Connect Switch from driver to upfront passenger on your journey

Drive from your wheelchair

4

Choose side or rear entry ramp

4

OEM boot space for luggage and equipment

4

Space for up to ve people – no extra cost for rear seats

4

Exceptional quality and aftersales service

Drive and transfer internally

New and Approved Used stock available for immediate delivery Book a free home demonstration W sirusautomotive.co.uk T 0121 505 7777 E sales@sirusautomotive.co.uk

Travel upfront in your wheelchair

ADHD MEDICATION CRISIS Thousands of people across the UK have been affected by the Attention Deficit Hyperactivity Disorder (ADHD) medication shortage causing stress and anxiety

A

DHD patients in the UK have been left feeling frustrated after learning about the global medication shortage through social media, instead of from their GP or pharmacy. The UK Government announced that there is a national shortage of ADHD medication due to a combination of manufacturing issues and increased global demand.

According to ADHD UK, there are 2.6 million people living with the condition in the UK, with over 200,000 people in receipt of a prescription to help manage symptoms. A national patient safety alert was issued by the Department of Health and Social Care in September 2023, which suggested it could take several months for the drugs to return to their usual levels of supply.

when I physically can’t do it, thinking ‘What’s the point of me even trying?’”

Jess notes that within three weeks of starting her ADHD medication, she felt focussed and more in control. “When I’m on medication, it brings things all up to the same level, which means that I’m not as overwhelmed all the time,” she highlights. “While in my head is still really busy, I’m able to process it much better.”

Jess went without her medication for weeks, and had to drive 40 minutes away from her home to receive her prescription. “Finally feeling more in control and balanced again meant everything to me after the stress,” reflects Jess. “I just wish that I was told that there was a shortage by my psychiatrist, not through social media, and that there was support available for me.”

LIVING WITH ADHD

NO SUPPORT

Jess Chandler was diagnosed with Autism and ADHD at the age of 19, and has since forged a successful career on social media, raising awareness on neurodiversity and providing support for her followers.

“I was in and out of CAMHS and different counselling services for so long because we didn’t know why I was struggling so much. I was finally diagnosed with autism and ADHD in November 2020,” Jess shares. “I had a huge meltdown, and my brain decided that I was probably better off not being alive anymore.

“I went from a place of before the medication thinking ‘Why am I even bothering? I can’t do anything’. Other people were just calling me lazy, but

24 enablemagazine.co.uk

Henry Shelford, CEO of ADHD UK, admits that while medication shortages like this are relatively rare, the response from the NHS and government was not adequate. “The NHS has no strategy around managing this kind of crisis,” explains Henry. “The reason it’s not being taken seriously is because people with ADHD face huge stigma.”

“We’ve had reports that in some areas of the country people are being asked to wait two years after diagnosis for any medication,” he concludes. “There’s no doubt that this will significantly increase the NHS treatment waitlists for ADHD.” Dr Ulrich Müller-Sedgwick, a leading ADHD expert and consultant with

Jess Chandler

They don’t realise how important it is for a child or an adult to have their medication

enable health

the Royal College of Psychiatrists, also stresses that doctors are struggling with the number of referrals. “I’m talking to colleagues from all over the UK and it is really the same problem,” Dr MüllerSedgwick highlights. “This is a situation where all our clinics are stretched already because we’re just not coping with the number of referrals.

“There is a lot of anxiety [from patients] that they may run out of medication which I’m dealing with in my clinic,” Dr Müller-Sedgwick adds.

“Some people are trying to order their medication earlier than usual but that is something we need to monitor because we don’t want them to overuse the medication.”

CARING FOR FAMILY

Craig Lester has been left frustrated due to a lack of support and information

while his family grapples with the impact of the ADHD medication shortage. Craig, who was diagnosed with ADHD when he was 40, has been left rationing his medication as a result of the shortage to ensure it lasts longer while caring for his son and daughter, who both have ADHD as well.

“It’s not a blame game, but they don’t realise how important it is for a child or an adult to have their medication,” stresses Craig. “You just don’t stop. It’s something that impacts you deeply, it affects your quality of life.

“I have had no communication from anybody about the shortage of medication, nothing from CAHMS for my son,” Craig states. “My son cannot be without medication, so I’ve secured medication for him up until the end of December, that’s it. After that I don’t know.”

Craig retired from his broadcasting career last year to help care for his son, and says that this has had an incredibly positive impact on his son’s life, alongside his medication. “He’s doing really well this year, but I can’t take him off his medication. He hasn’t missed a day of medicine since he went on it.”

FOR MORE INFORMATION Visit ADHD UK (www.adhduk.co.uk) to learn more about the condition and the support that is available to you.

For parents who are supporting a child with ADHD, visit the ADHD Foundation’s resource hub (www.adhdfoundation.org.uk) and search for information for parents.

To keep up to date with Jess Chandler, follow her on Instagram and TikTok @thejesschandler

enablemagazine.co.uk

25

C

Tailored short breaks with 24 hr nursing care leuchiehouse.org.uk

Leuchie is a charity registered in Scotland no SC042249

M

Y

Speak to Jo or Katy to book on 01620 892864

CM

MY

CY

Self-catering breaks

CMY

Leuchie’s fully accessible, self-catering holiday accommodation in East Lothian.

K

To find out more and book, visit leuchiehouse.org.uk/self-catering

I’m really enjoying using my new

ROBOOTER POWERCHAIR. It is lovely to drive and so comfortable to sit in, I almost don’t want to get out of it!

It’s perfect for those tight spaces when there is not very much room to turn.

The fact that it can go so far on one charge is a bonus as well.

LOST VOICE GUY, LEE RIDLEY

ROBOOTER POWERCHAIR AVAILABLE EXCLUSIVELY FROM DASH REHAB. Visit dashrehab.co.uk for more details 0845 146 0600 • sales@rhealthcare.co.uk

Robooter Advert_Offer.indd 1

LIMITED OFFER:

£200 OFF QUOTE: NY200

06/12/2023 09:55:47

enable voices

Samantha Renke Samantha is someone who says yes to new opportunities. Alongside author and activist, she has too many accolades to count. She never shies away from the taboo, and above everything, she is always honest.

Follow Samantha on Instagram @samantharenke

TIME TO PRESS THE RESET BUTTON I

’m not one for New Year’s resolutions. I mean, giving myself pressure at the beginning of a new year is simply unrealistic, not to mention such a burden on your mental health.

Besides, I’m a January baby, Capricorn Queen, so my birthday will be full of bubbles and cake not sobriety and fad diets.

But there is one thing I desperately want to tackle: the pace at which I go about my day to day.

I always feel like I’m in a rush. From the moment I wake up, I feel a looming pressure like a ticking time bomb racing inside my chest. It doesn’t matter

I am going to simply take a breath, press the reset button and slow down

whether I am delivering an important keynote presentation, or simply having a mental health day curled up with my cats. Even having a shower and getting dressed seems to be done in haste.

Sometimes I even catch myself holding my breath trying to get things done as quickly as possible, as though the simple act of breathing would somehow slow me down.

CODE-SWITCHING

I’ve always been like this, at least as far back as I can remember. I suppose there are many factors which have contributed to my speedy disposition.

As someone who battles with general anxiety on top of having brittle bone condition which can leave me feeling on edge, I try to risk assess every movement or situation. I also lost a parent at a young age, so this sense of urgency absolutely has to do with past traumas, which I am now incredibly privileged to be working through with a therapist.

However, I believe that the main factor is my internalised ableism which has always made me feel like my natural way

of being is a burden to others.

The fact that I can’t get dressed or complete tasks as fast as my nondisabled peers has always led me to believe that it is my responsibility to catch up and behave inside the parameters of an enabled world. As though my slower pace would be a hindrance to others.

I guess this is a form of codeswitching.

It has become so embedded in my day-to-day that fast and busy means better. Yet it is completely to my own detriment. My constant haste means I feel physically and emotionally drained and I burn out quickly.

So, this year, I am going to simply take a breath, press the reset button, and slow down.

By the time this article goes to print, I will be in my new accessible bungalow with a fully bespoke kitchen. My first stop on my reset mission is to start cooking and baking more while enjoying my downtime eating my meals.

Just call me Nigella!

enablemagazine.co.uk

27

PIC :© NICKY JOHNSTON

In the latest instalment of her new column, Samantha Renke discusses the power of slowing down in the new year

enable life

SWIPE RIGHT? Modern dating is a minefield. Managing expectations, spotting red flags, dealing with unsolicited photos sent via dating apps… there’s a lot to consider. Add a disability into the mix and it gets even trickier to navigate. What support is out there?

T

he biggest thing we do is promote friendship first,” explains Rebecca, an event planner with Dates-n-Mates.

The social enterprise was founded to support adults with a learning disability with friendship and dating. Based in Scotland, Dates-n-Mates organises dates and workshops on everything from consent and sex education to digital safety.

FRIENDSHIP FIRST

Focusing on friendship seems to be a smart path, especially when dating and relationships can be full of pitfalls.

Additional vulnerabilities mean that disabled people can really benefit from the support of organisations when it comes to discovering a loving, fulfilling relationship.

There are some unique barriers to tackle, like lack of education, societal attitudes, and privacy. “People have these ideas of what love is and what a relationship is from the movies or social media,” explains Rebecca. “They never get taught in school what a healthy relationship should look like.”

28 enablemagazine.co.uk

THE LOVE PROJECT

Research carried out by the University of Kent, titled The Love Project, investigated the issues that disabled people face when exploring love and relationships. The study found that while parents and carers were supportive of disabled adults exploring relationships, there were concerns about abuse and exploitation. Dates-n-Mates’ Rebecca agrees: “A lot of our members don’t see themselves as having a learning disability – they just see themselves as being different, which is great, but I worry that people outside of the community might take advantage.”

Providing a safe space for disabled people to gain deeper understanding about relationships is vital. Disability charity Enhance the UK is tackling some of the biggest taboos head-on with its Love Lounge service, an advice line offering personalised support on everything from improving your confidence when dating, to managing sex with a catheter and stoma.

Their website is also home to the Undressing Disability Hub, a platform to

share information and build awareness around sex and disability, using inclusive, fuss-free language.

SOULMATE SEARCH

Having the opportunity to form genuine connections without fear of judgement or discrimination is so important, and specialist organisations like Dates-nMates make finding your soulmate a little easier. “When you’re on dating apps it can be quite isolating,” Rebecca says. “You don’t know who the person is behind the phone.” But at Dates-nMates events, members get the chance to mingle with others. “They often come to us and say ‘I like the look of them, can I get a match with them?’,” she reveals. And, although the course of true love never did run smooth, that first step can be the start of something beautiful…

FOR MORE INFORMATION For tailored matchmaking or events in Scotland, visit Dates-n-Mates (www.datesnmates.org.uk). For support and information on sex and relationships, visit Enhance the UK (www.enhancetheuk.org).

Until 28 April 2024

Accessible apartments at UNCLE Depford.

From March 2024.

Renting, as it should be. © Juno Calypso. Courtesy the artist and TJ Boulting. Wellcome Collection is part of the Wellcome Trust. The Wellcome Trust is a charity registered in England and Wales, no. 210183. MP-7440.31/10-2023/BS

join.uncle.co.uk/deptford-accessible-apartments

Explore our accessible homes L&Q at

L&Q at

L&Q at PLUMSTEAD

Coming Soon

Coming Soon

Coming Soon

A collection of spacious wheelchair accessible homes exclusively available through Shared Ownership in London Register your interest on

lqhomes.com/accessibility For full L&Q terms and conditions visit lqhomes.com. All details are correct at time of print. Copyright © 2023 L&Q Group. All Rights Reserved.

3975 L&Q Elephant Park ENABLE Mag Ad 137.5x190.indd 1

13/12/2023 14:27

Afex Quarter Page_09.02.2021.indd 4

11/02/2021 10:13

F R E E D O M

Intelligent Braking System

Intelligent Cruise Control

M o t i o n D i re c t C o n t ro l

enable life

VOLUNTEER AS A

GUIDE DOG PUPPY RAISER Guide Dogs UK are on the look-out for puppy training volunteers for one year, before the pups go onto a specialist centre to complete their training

G

uide Dogs UK have launched a brand-new puppy raising scheme, asking individuals to open their home to a puppy for the first year of their life. This is part of a largescale initiative to increase volunteer numbers, so more guide dogs can be trained for people with sight loss.

Puppy raisers play a vital role in the development of a guide dog, teaching important basic commands and socialising the young pups. “I’m really proud to be leading our new Puppy Raising scheme in Suffolk and Norfolk,” exclaims Fay McAllister, Puppy Development Advisor for Suffolk.

“Being a puppy raiser for Guide Dogs is an exciting and rewarding opportunity to raise a guide dog puppy and prepare them for their future role supporting someone with sight loss.”

WHAT IT ENTAILS

Becoming a volunteer puppy raiser means that you will teach the foundation of basic training commands and cues for your pup in a safe environment. “It’s a long-term role, as each puppy will live with you for at least a year,” adds Fay. “We’ll provide all the support and training you need, so you feel well equipped to care for your puppy when they arrive with you.”

Training a guide dog is very different from having your own pet, as after 1216 months you will say goodbye before it moves onto further training.

“We’ll also be running regular puppy training classes across the county,”

encourages Fay. “Which will be a great opportunity to meet other volunteers in this role and support each other.”

TRAINING PROCESS

Guide dogs begin their lives in their breeding dog volunteer’s home.

Here the pups will get early vital socialisation and exposed to different people, sounds, and smells.

At eight weeks old, the pups will move onto the home of their puppy raisers where they will start their training. The pups will learn integral skills and commands, explore different environments while learning to keep calm amongst their surroundings.

After around 12 months with their puppy raiser, the pups will officially start their formal training at a Guide Dogs centre. The dogs will learn from trainers and wellbeing staff either on site or at their volunteer foster home.

Here the dogs will learn key commands, as well as verbal, visual and environmental cues through marker training; before going onto help people with sight loss.

GET INVOLVED

While animals can provide great love and companionship, taking on a pet amidst the cost-of-living crisis might not be financially viable for many.

Guide Dogs UK will cover the cost of all food, veterinary care and equipment for each pup so volunteers don’t face financial hardship.

The charity is looking for 60 new homes and volunteers for guide dog pups across Suffolk and Norfolk.

To become a puppy raiser, volunteers must be aged over 18, have suitable housing, and the time to give their pup the love and attention they deserve.

FOR MORE INFORMATION If you’re interested in becoming a puppy raiser, contact volunteering coordinator Melanie Brown via volunteermidlands@guidedogs.org.uk or call 0800 781 1444.

If you would like to volunteer but being a puppy raiser isn’t the right fit for you, visit Guide Dogs UK (www.guidedogs.org.uk) for different opportunities.

enablemagazine.co.uk

31

Lightweight Mobility & Seating

Main distributors • Dietz Mobility • Formalign Seating • Karma Mobility • Ki Mobility • Otto Bock • Spex Seating • Triride • Tomcat Trikes • Permobil • Quickie

enable health

A DEADLY SURVIVAL MECHANISM From Twiggy in the 60s to the TikTok filters of today, concerns around body image have been present for decades. One area that’s under increasing investigation is the link between eating disorders and neurodiversity.

Melissa Holmes finds out more

S

ensory issues.

Repetitive habits. Fixed mindset. Executive dysfunction. Negative self-image… Separately, these can all be traits of neurodivergence (ND) but, combined, they may be a recipe for an eating disorder (ED).

Emerging research shows ND people have an increased risk of developing ED: a 2020 study found that elevated Autistic Spectrum Disorder traits are present in around a third of people with anorexia, while research from 2007 found that females with ADHD are nearly four times more likely to develop an ED. Nearly 20% of individuals diagnosed with avoidant or restrictive food intake disorder (ARFID) also have autism.

enablemagazine.co.uk

33

enable health

A VICIOUS CYCLE

ON A HIGH

There can be biological causes, as Suzie reveals: “My psychiatrist said ADHD and binge eating disorder are closely linked because you’re constantly looking for that

34 enablemagazine.co.uk

Supporting people with cooking and ensuring they have agency over other aspects of their life means they feel less need to control food dopamine hit. For some ADHD people it’s alcohol or drugs. For me, it’s food.”

Writer Kat Brown was diagnosed with ADHD at 37, after years of depression, insomnia, anxiety and binge eating. Her book ‘It’s Not a Bloody Trend: Understanding Life as an ADHD Adult’ is released in February. Almost everyone Kat spoke to for her book had experienced issues with food: “One chap had never used alcohol or drugs, but biscuits were his thing. He’s pre-diabetic and trying to improve his health.” As Kat explains, food is so easy to access, and processed food is specifically designed to hit the body’s pleasure receptors – a perfect storm for ADHDers.

So how can we support people with ND to live with or recover from ED? Medication can help: although not without its side effects, Suzie’s prescription curbs her bingeing and minimises other elements of her ADHD. Kat refers to the “golden triangle of treatment – medication, therapy and coaching.”

PERSON-CENTRED APPROACH

Stuart Lyons is a Senior Behaviour Specialist at Autism Together. He supports people with learning disabilities and autism, so his person-centred approach accommodates the needs of the individual and enables them to live with their ED. “For someone with Pica, we keep their environment safe so there’s nothing inedible around that will be dangerous if

Comedian Juliette Burton

ingested,” he explains. “With social anxiety, we plan out the person’s day so they can eat in private at a time that suits them.” Dieticians can help people get the right nutrients when they’ll only stick to ‘safe’ bland foods. Stuart also suggests supporting people with cooking and ensuring they have agency over other aspects of their life, so they feel less of a need to control food.

Greater awareness and acceptance is a gamechanger too.

“Raising understanding will lower people’s fear around people with differences,” says Stuart. “The more people are aware, the more understanding they are.” That’s an approach Juliette would agree with.

Her shows sell out at the Edinburgh Fringe and she runs community and corporate workshops around comedy and mental health. Comedy is her main source of ‘therapy’: “I use comedy as a survival mechanism.

It’s a way of finding light in the darkness. Life is hard enough,” Juliette admits, “and we need more laughter. It loses its power if you’re laughing at it.”

FOR MORE INFORMATION If you need support or advice, visit Autism Together (www.autismtogether.co.uk), or if you are struggling with an eating disorder, visit Beat (www.beateatingdisorders.co.uk) for support.

PIC: © STEVE ULLATHORNE

Suzie – diagnosed with ADHD at 37 – grew up in the 90s, a time of heroin chic and intense tabloid scrutiny. Body image was everything, and Suzie’s mum was into exercise videos and faddy foods. “I was born into this diet culture,” she explains. A GP appointment for her preteen ‘puppy fat’ led to restricted packed lunches and enforced exercise. Into adulthood, Suzie struggled with binge eating disorder. “If something bad happened, I’d order a huge takeaway and eat and eat. I’d feel sick and guilty so I’d buy a gym membership, book every class, and show up to maybe two. And I’d feel sad that I’d not been to the gym, so I’d binge… It was a punishing cycle.”

Comedian Juliette Burton had similar experiences in childhood: “I was very overweight from age 8 to 11 and was regularly taken to hospital to be weighed and measured, which created an obsession with food and weight,” she explains. At 14, she was diagnosed with anorexia, and at 17, she was sectioned when her condition became life-threatening.

Several mental illness diagnoses followed, including depression, PTSD and bipolar disorder, along with bulimia and binge eating disorder. Juliette says: “I used to see my eating disorders as monsters I needed to fight, but now I see them as trying to protect me; helping me survive overwhelming feelings.”

For some ND people, EDs provide a coping mechanism; a way of controlling something in a life that feels out of control. Food can also be used to self-soothe or stim – to get them through something boring, to create focus, or to have something in their mouth or hand. Disordered eating can often manifest due to sensory sensitivities, anxiety, or poor interoception, like not picking up on hunger cues or feelings of fullness.

DASHI Mg ONE OF THE WORLD’S LIGHTEST POWERCHAIRS BUILT WITH YOU IN MIND Lightweight Easy to transport and transfer – perfect for car + airline travel Travel up to 9 miles on a single charge Foldable with leg rests Stylish For more details visit: dashrehab.co.uk/dashi-mg/ 0845 146 0600 • sales@rhealthcare.co.uk

Dashi Advert.indd 1

25/08/2023 12:33:53

enable life

DANCE FOR

PARKINSON’S

Let’s dance! We discover how a little boogie can ease symptoms and improve quality of life for people living with Parkinson’s disease

D

ancing is more than just good fun – it’s a great way to exercise and stay fit. What’s more, it offers unique benefits for people living with Parkinson’s disease, such as improving stability, balance and movement.

Around 153,000 people in the UK are living with Parkinson’s disease. The progressive neurodegenerative disorder is caused by a loss of nerve cells, which leads to symptoms like tremors, muscle stiffness and slow movement… So how can dance help?

Published in early 2023, the Cochrane Movement Disorders review studied almost 8,000 people with Parkinson’s. It found that physical activities like dance, yoga, strength and resistance training can improve the severity of movementrelated symptoms – and the quality of life – for people living with Parkinson’s disease.

GOTTA DANCE

Creativity, expression, social interaction, exercise… Dance provides it all! The Cochrane research team

noted that dance helped with balance and other movementrelated symptoms of Parkinson’s, and increasing numbers of dance studios across the UK are launching courses specifically for those living with the disease. Dancing to music can be a powerful tool for addressing the physical aspects of Parkinson’s, like cueing movement and expression. It also helps develop postural stability, balance and flexibility, as well as enhancing fluidity of movement.

“For a lot of our dancers, the dancing itself might not have been what brought them through the door,” explains Katie Cunningham, from Dance Base, Scotland’s national centre for dance.

Instead, it’s curiosity that leads their feet to the dancefloor.

In a programme established in partnership with Scottish Ballet, Dance Base offers sessions for people with Parkinson’s along with their carers and families, which are led by trained dancers and accompanied by live music. Katie explains “We’ve found that the dancers perceive improvements with their mobility, mood, and

confidence through attending our classes. We’ve seen our dancers making and maintaining strong relationships with others, and it’s this element of peer support which makes it so special, particularly for carers of people living with Parkinson’s,” Katie adds.

The Dance Base classes can also help people reconnect with their partners and spouses. “It’s wonderful because everybody there is in the same position, and you’re not in a medical situation,” says one participant. “You’re in a social situation where you can talk and get support from each other.” Solidarity, the feeling of not being alone, making friends and sharing laughter are just some of the other benefits, as the dancer explains: “It’s a huge boost to us both.”

With uplifting physical, emotional, social and therapeutic benefits, it’s clear to see that dance is definitely worth dipping a toe into this New Year.

GET INVOLVED A number of dance organisations run both in-person and online Dance for Parkinson’s classes, along with other inclusive options for disabled people, including: Dance Base Scotland – www.dancebase.co.uk

National Dance Company Wales (with sessions in Wrexham, Bangor, Blackwood, Porthcawl and Cardiff) – www.ndcwales.co.uk/dance-parkinsons Scottish Ballet (with classes in Aberdeen, Dundee, Glasgow, Greenock, Inverness, Peebles, Perth and Stirling) – www.scottishballet.co.uk/parkinsons/

PICS: © GAVIN JOYNT

English National Ballet (with outreach classes in London, Ipswich, Oxford and Liverpool) – www.ballet.org.uk/project/ dance-for-parkinsons

FOR MORE INFORMATION If you or a loved one is affected by Parkinson’s Disease, visit www.parkinsons.org.uk or call 0808 800 0303 for support, information and advice.

36 enablemagazine.co.uk

We want everyone to be able to access and enjoy all that Aberdeen Performing Arts has to offer.

• Audio described performances • BSL interpreted performances • Captioned performances • Relaxed performances • Hearing assistance • Touch tours • Essential companions Find out more at aberdeenperformingarts.com/access

01 & 02 FEBRUARY 2024 BOOK NOW! 01302 303 959 | CASTINDONCASTER.COM

CAST, WATERDALE, DONCASTER DN1 3BU

DON’T LEAVE US BEHIND

Can we consign cervical cancer to history?

NHS England has pledged to eliminate cervical cancer by 2040, but this can only happen if everyone is included in screening. To mark Cervical Cancer Prevention Week, we ask: how accessible are screening programmes for disabled women and people with a cervix?

38 enablemagazine.co.uk

enable health

I

f it’s found early enough, cervical cancer is one of the most treatable forms of cancer. Regular screening can detect and even prevent cervical cancer, which is the fourth most common cancer among women and people with a cervix worldwide. Thanks to screening programmes, and the HPV vaccine given to teenage girls in UK secondary schools, the NHS England goal to eliminate the disease by 2040 doesn’t seem too far-fetched. But this target won’t be achieved unless more disabled women and people with a cervix are able to access screening and preventative measures.

INVISIBLE

According to research by Jo’s Cervical Cancer Trust, 88% of disabled women find it difficult to attend a cervical screening, while 63% said they’ve been unable to attend due to their disability. The report – ‘We’re Made to Feel Invisible’ – highlights the barriers disabled people face when trying to access screening, from physical access issues to outdated stereotypes around sex and disability.

Kerry Thompson waited more than ten years for follow-up testing after her smear test showed abnormalities.

As a wheelchair user with muscular dystrophy, Kerry struggled to access screening. “I had a smear test with my local GP. The nurse would come to my house to do it, because it was becoming increasingly hard to have it in the surgery which wasn’t equipped for my needs,” explains Kerry. After

We want to see the resourcing, the funding, the staffing to consign this cancer to the history books

moving to a new home close by, Kerry was forced to change GP, but the new surgery was completely unable to meet her accessibility requirements.

“I got a letter back with my results stating that there was an abnormality and that I needed to be retested,” says Kerry. “I tried and tried with my new doctors with no joy. Every year for ten years I received a letter saying I was overdue. Every year I would phone up, and was told by the receptionist they couldn’t cater to my needs.”

Following years of knockbacks from healthcare professionals, Kerry was left feeling numb and frustrated. “I’d become so deflated,” she reveals. “I didn’t push [the doctors]. I could have pushed harder but I’d rather make the best out of a bad decision, so if somebody else can learn from my mistakes then that’s ok.”

BARRIERS

The HPV vaccine (which is more than 99% effective at preventing pre-cancerous cells resulting from HPV, the virus that’s been linked to 70% of cervical cancers) and cervical screenings are the most effective methods for preventing cervical cancer. But disabled people are often left out of the equation and struggle to get the healthcare they need, for a multitude of reasons including inaccessible facilities to outdated views on disability and sex.

“For lots of women, there is anxiety around the test and what it entails,” explains Hannah Wright, a policy officer at Jo’s Cervical Cancer Trust.

“Anyone who has past experiences of pain or trauma can find it difficult to attend. But we also know that, for a lot of women with a physical disability, there can be even more barriers.”

STIGMA

“There are many different stigmas, myths and misconceptions around this. [Disabled] women were told that they didn’t need to be screened for cervical cancer because it’s assumed they weren’t sexually active,” highlights Hannah. “Or women were told that they’re ‘too complicated’ because they’ve got different access needs, and were then encouraged to remove themselves from the screening programme.”

This is something Kerry is all too familiar with. After years of being unable to get past the doctor’s reception, she faced further discrimination. “You still have a lot of professionals assuming you don’t have sex because you’re disabled, so you don’t need a test,” explains Kerry.

CALL TO ACTION

Cervical Cancer Prevention Week takes place from 22 to 28 January 2024, to raise awareness and highlight what needs to change to meet the 2040 goal.

“We want to see the resourcing, the funding, the staffing to make elimination a reality, to consign this cancer to the history books,” declares Hannah. “We need to see strategies that actually put tackling inequalities at the front of our approach, and we need to see the resourcing and actual commitments from government to make this happen.”

“We know across vaccination and screenings that there are massive disparities between the groups who can attend these prevention programmes,” stresses Hannah. “We won’t eliminate cervical cancer if we leave certain people behind.”

DON’T LEAVE US BEHIND

Determined to make change for herself and others, Kerry is working with her local hospital to improve their accessibility procedures so other people don’t have to endure what she went through. “2040 to eliminate cervical cancer? Great, fabulous. Just don’t leave us behind,” exclaims Kerry.

The prospect of wiping out cervical cancer within the next 16 years should be celebrated. But this won’t happen while disabled women and people with a cervix are being failed by the system and being forced to face increased risk of cervical cancer because of inadequate care. Progress is being made but, in order to meet these targets, focus on accessibility must be a priority going forward to ensure everyone is included.

FOR MORE INFORMATION Visit Jo’s Cervical Cancer Trust (www.jostrust.org.uk) for support, advice and information on accessing cervical cancer screenings.

enablemagazine.co.uk

39

www.motomed.com

Medimotion A4 Muvi_Loop.indd 1

03/02/2022 13:06

enable life

RECIPE

NATHAN ANTHONY’S

RED PEPPER BRUSCHETTA PASTA

A note from Nathan: This is another slow cooker recipe I came up with when trying to decide between two favourite dishes. In this case, bruschetta and pasta. The result is this soft pasta with lots of flavour, crunchy croutons and a drizzle of balsamic: stunning. I do enjoy making my own sourdough croutons in the air fryer or the oven, but shop-bought croutons work very well if you don’t have the time.

SERVES 3 INGREDIENTS 2 x 300g jars of roasted red peppers, chopped 15 cherry tomatoes, quartered 700g passata 1 tsp dried oregano 4 garlic cloves, grated Generous handful of fresh basil 250g fresh lasagne sheets, cut into thick strands Salt and pepper, to taste 4 tsp balsamic vinegar

To make your own sourdough croutons, cube a couple of slices of bread, toss them in olive oil and put in the air fryer at 200°C for 6 minutes, or in the oven at 200°C for 10–12 minutes.

Croutons

STEPS 1. Add the peppers, tomatoes, passata, oregano, grated garlic, salt and pepper and most of the basil to the slow cooker. Cook on high for 2 hours or low for 4 hours.

Nathan Anthony

2. Add the lasagne strands and cook for a further 20–25 minutes (if cooking on low, you may need slightly longer).

3. Plate up and top the pasta with the balsamic vinegar, croutons, parmesan and remaining fresh basil.

Extracted from Bored of Lunch Healthy Slow Cooker: Even Easier

by Nathan Anthony (Ebury Press, £20 Photography by Dan Jones).

enablemagazine.co.uk

PICS: ©DAN JONES

50g grated vegetarian parmesan cheese, to serve

41

enable health

EMPOWERED EATING With many of us over-indulging in the festive season, the new year can be the perfect time to reset your diet. Our useful tips and quick switches will help you take control of your eating and practice healthy, sustainable habits this year

H

ealthy eating is important for everyone, but a good diet can also help avoid exacerbating problems relating to some disabilities. Although improving your diet might feel overwhelming and confusing, a few simple changes can make a world of difference. Slowly incorporating these into your eating regime will ensure that these become sustainable, healthy habits that support your wider lifestyle.

EMBRACE (PLANT) DIVERSITY

Maintaining energy levels and a healthy weight, ensuring bone health and preserving strength – all of these can come from consuming a diverse, balanced diet. Your diet should be varied and incorporate all the food groups, so don’t eliminate certain categories unless advised to do so by a doctor.

Experts recommend that we eat around 30 different plants a week.

Helpfully, this includes not only fruit and veg but spices, wholegrains and even coffee. Diversity supports a healthy gut microbiome and reduces the risk of developing chronic diseases like type 2 diabetes and inflammatory bowel disease.

Try to eat more seasonal, locally produced foods. This not only reduces the carbon footprint of your diet, but it can also help you get the highest levels of nutrients from your food.

Seasonal produce is often cheaper, too. Visit Eat the Seasons (www. eattheseasons.co.uk) or speak to your local greengrocer to find out what foods are in season and how you can enjoy them.

42 enablemagazine.co.uk

PRIORITISE WHOLEFOODS

Don’t miss out on carbs – opt for wholegrain versions of your favourites.

Choose seeded wholemeal bread over white or switch processed white rice for wholegrain brown.

There’s a common misconception that eating well requires superfoods or elaborate cooking, but a familiar classic like beans on (wholemeal) toast is a brilliant option, providing protein, fibre and complex carbs. Or try enriching your morning porridge or cereal with peanut butter, fruit and seeds.

PLAN AHEAD

Adopting these switches may sound easy enough, but if you live with a disability there can be barriers to how you plan, shop for and eat your meals.

It might help to plan meals ahead of time for yourself or the person you care for, taking the individual circumstances and requirements into account.

Explore BBC’s Good Food’s thousands of recipes suitable for a range of diets and cooking abilities (www.bbcgoodfood.com) and save your favourites in the app so you’re never short of inspiration. Social media can be a great tool for very visual recipes and cooking tips.

Keeping a food diary is a good way to get a picture of your eating habits, and may be useful when discussing your diet with carers or medical providers.

Improving your diet might feel overwhelming, but a few small changes can make a world of difference FOR MORE INFORMATION Visit NHS Eat Well (www.nhs.uk) for more information on eating a balanced diet, meal tips and health advice.

We provide: Free online webinars led by a legal professional on wills and trusts.

A list of specialist legal professionals who can assist in putting these provisions in place.

Are you worried your loved one with a learning disability will not get the financial protection they need when you’re no longer around?

Rest assured, Mencap’s Wills and Trusts service can offer guidance and support to help you navigate this area of law.

Royal Mencap Society, 6 Cyrus Way, Hampton, Peterborough PE7 8HP Registered charity number 222377 (England and Wales); SC041079 (Scotland) 2023.08

Free guides that discuss the different aspects associated with wills and trusts.

A knowledgeable and dedicated team available for those planning for the future.

If you would like further information visit: www.mencap.org.uk/willsandtrusts or scan the QR code 020 7696 6925

enable advertorial

TAKE A BREAK IN JERSEY – THE ACCESSIBLE ISLAND T

his is what dreams are made of,” said Susan Hawley from Leeds, one of the first guests to stay with Maison des Landes following their reopening last June. Susan’s kind words set the tone for the feedback they received throughout the season, as guests enthused about the newly remodeled hotel and its facilities.

“Every need is catered for here and the food is absolutely amazing. The staff are brilliant – so friendly and approachable. Nothing is too much trouble,” said another guest.

The result of a two-year, £3.8 million refurbishment, Maison des Landes combines the relaxing atmosphere of a modern hotel with the very latest facilities for disabled people, their families and carers. The hotel has 23 specially equipped rooms, a 48-seater restaurant and a beautiful lounge and orangery. Guests can also enjoy their accessible indoor swimming pool and tranquil grounds with beautiful views.

Located in the island’s north-west

corner overlooking Jersey National Park, the hotel makes a wonderful base from which to enjoy the island.

Jersey is well equipped to offer disabled people a fantastic holiday.

Some the island’s prettiest bays can be accessed using BeachAbility’s specially designed beach wheelchairs and guests can even try assisted surfing with local ocean therapy group Healing Waves.

Maison des Landes has an excellent relationship with Jersey’s activity providers, tourist attractions and disability organisations which enables them to provide a range of organised activities, including visits to Jersey Zoo, the Maritime Museum and Jersey War Tunnels. Guests can explore the island’s marine environment in specially adapted boats through boat trips with WetWheels.

Jersey is renowned for its good food, and Maison des Landes is no exception. Chef Martyn and his team use fresh local produce to conjure up a menu of culinary delights that

keep guests smiling from breakfast to dinner.

The friendly and empathetic team work hard to ensure that every stay is tailored to guests’ individual needs, allowing them to relax without worry.

The hotel has 15 fully accessible ground floor bedrooms that have wheel-in wet rooms and come fitted with ceiling hoists. Premium rooms have easily accessible private patios and continued tracking from the beds to the en-suite wet rooms.

For a relaxing break, there really is no better place in Jersey for disabled people. Maison des Landes looks forward to welcoming guests old and new for an unforgettable stay.

FOR MORE INFORMATION Please call 01534 481683 or visit our website www.maisondeslandes.co.uk

44 enablemagazine.co.uk

PICS: © OLLIE JONES

Maison des Landes is a hotel designed specifically for disabled people. With views over Jersey National Park and St Ouen’s Bay it makes a wonderful location for a relaxing holiday

Stay somewhere special

Relax in Jersey’s accessible hotel Wheelchair accessible self-catering log cabins

in the Peak District countryside The only hotel in the Channel Islands designed specifically for people with disabilities, Maison des Landes provides the relaxing atmosphere of a modern hotel and the very latest facilities.

Mobile hoist Specialist equipment Roll in wet room shower Dogs welcome Off-road wheelchair hire

For more information please visit our website: www.maisondeslandes.co.uk, call 01534 481683 or email: reservations@maisondeslandes.co.uk

www.hoegrangeholidays.co.uk tel: 01629 540262

Meadowsweet Bungalow

Beautifully presented modern self-catering bungalow in Scotland with spectacular views. Fully accessible for wheelchair users, with specialist equipment. Sleeps 5.

Meadowsweet is near Kilmartin Glen, in the Moine Mhor National Nature Reserve.

Heating and linen is provided. Fibre broadband, BT TV and WiFi. • Level drive and ramp • Alerta Low profiling bed • Oxford Mini 140 hoist

• 23 specially equipped rooms • Lounge and orangery • Accessible indoor pool • 48 seat dining room • Large tranquil gardens • Views of Jersey National Park

• Freeway Tilting Shower Chair • Fully adapted wet room • Wide doors, spacious rooms

Ruth Bebb ruthbebb@btinternet.com

www.meadowsweetbungalow.co.uk

FREE DAYS OUT

To bring a bit of new year cheer, we’ve compiled a list of the best free and accessible days out to enjoy across the UK THE CULT OF BEAUTY

Wellcome Collection, London www.wellcomecollection.org The Cult of Beauty is the latest exhibition taking place at Wellcome Collection, giving visitors the chance to reflect on inclusive beauty. The free exhibition has step-free access to all floors of the building, equipped with accessible toilets on each including a Changing Places Toilet on the ground level. The Cult of Beauty considers the influence of morality, status, age, race and gender on the evolution of ideas about beauty. The venue offers free live access tours of the exhibitions on request including, but not limited to: audio description, British Sign Language-led, British Sign Language-interpreted and speechto-text.

Wellcome Collection

Screech Owl Sanctuary & Animal Park

DEMENTIA FRIENDLY CONCERTS

Glasgow Royal Concert Hall www.glasgowlife.org.uk Glasgow Life has organised a selection of dementia-friendly concerts in January. Music plays a big part in dementia care, as research shows it can help manage mood, reduce anxiety and reconnect people with themselves. The Willows will perform at the Glasgow Royal Concert Hall on January 23, 2024.

The following week, trad duo Mairi McGillivray and Katie Allen will perform in the venue on January 30, 2024. Both concerts are free but ticketed. Tickets can be booked in person at Glasgow Royal Concert Hall Box Office, via the Glasgow Concert Halls website, or by phoning 0141 353 8000.

ANIMAL SANCTUARY

Screech Owl Sanctuary & Animal Park, Cornwall www.screechowlsanctuary.co.uk This is the perfect family fun day out for all animal lovers who are keen to learn more and interact with owls, emus, alpacas, and goats on-site at the sanctuary. The Sanctuary is an

46 enablemagazine.co.uk

National Museum Cardiff

award-winning visitor attraction that homes and cares for owls and other animals. The recently renovated site ensures that wheelchair and mobility scooter users can access all enclosures and see each animal as part of the experience. There are multiple

benches throughout the centre to accommodate visitors with limited mobility. The centre is open seven days a week, between 10am - 3pm and for the Winter Season is completely free to visit including parking, although donations are appreciated.

enable life PATTERN POD

The Science Museum, Kensington www.sciencemuseum.org.uk The Science Museum has created a completely free sensory experience for children under the age of nine, accompanied by their parents or carers, where they can develop skills through play. In Pattern Pod, children can explore water ripples without getting wet, create images and patterns on touch screens as well as many more fun interactive activities. The free interactive gallery is conveniently located on the ground floor, with accessible toilets on every level including a Changing Places Toilet within the premises. While admission is free, booking tickets is required and can be done online.

Pattern Pod, Science Museum

PICS: © NATIONAL MUSEUM CARDIFF; ANDREW WRIGHT BENJAMIN GILBERT / WELLCOME COLLECTION; BOB GREAVES ; SCIENCE MUSEUM GROUP

RAF MUSEUM

Royal Air Force Museum, Midlands www.rafmuseum.org.uk The RAF Museum provides an enjoyable day out for the whole family, featuring an impressive playground as well as a huge selection of interesting exhibits.

The museum is open daily from 10am and is free to enter but pre-booking tickets before arriving is advised. The site has manual wheelchairs and motor scooters available on loan to visitors.

Additionally, the museum ensures that all exhibitions are accessible via lifts within the building. The museum features a virtual reality flight simulator, the National Cold War Exhibition featuring a slew of artefacts, and an aviation-themed playground for the young visitors.

Royal Air Force Museum

THE FOSSIL SWAMP

National Museum Cardiff, Wales www.museum.wales This exhibition transforms the space into the ancient tropical swamp that once covered Wales over 300 million years ago, before both humans and dinosaurs walked the earth. All areas of the museum can be reached via lifts, with wheelchairs and mobility aids available on loan, and plenty

of seating throughout to ensure visitors can make the most of the exhibit. Visitors will get to learn about the tropical wetlands and experience a first-hand look at the huge 3D centrepiece Stigmaria.

The exhibition is completely free for everyone, including parking for blue badge holders, and provides the perfect space for an accessible family day out for those interested in learning about the distant past.

FOR MORE INFORMATION Tourism For All https://www.tourismforall.co.uk/ Tourism for All is a comprehensive online hub or accessibility information, whether you’re planning a journey or looking for information on events, activities, excursions or accommodation.

Euan’s Guide www.euansguide.com Euan’s Guide is an access charity best known for its reviews and campaigning to make thousands of accessible toilets safer. The site tackles a general lack of disabled access information for attractions throughout the UK. AccessAble www.accessable.co.uk AccessAble takes the chance out of going out, providing detailed information on how accessible somewhere is before you leave the house, with facts, figures and photographs available online or through a dedicated app.

enablemagazine.co.uk

47

Hill Lodge

Accessible Self-Catering Accommodation, Poole, Dorset

• Semi-rural location 20 minutes from the spectacular Jurassic Coastline and Poole Harbour • Sleeps 6 • Wheelchair accessible ground-floor with wheel-in wet room • Electric profiling bed • Adapted kitchen • Variety of mobility aids provided, on request, including self-propelling shower-chair • Dogs welcome

Contact:

Tel: 01202 630075 becky@endeavour-uk.co.uk www.endeavour-uk.co.uk

Spark your curiosity at Winchester Science Centre Explosive live science

Out-of-this-world Planetarium

Nature adventures

Chipping Campden’s history in stone is the Cotswolds’ hidden gem - an idyllic centre for easy access to the local towns and villages, Stratford, Cheltenham, Gloucester, Oxford, Warwick & Worcester, etc.

George Barn is within no more than a 7 to 8 minute walk to the curved High Street, its inns, restaurants, shops & attractions.

Michael Haines George Barn, Blind Lane, AA

Free carer tickets Accessible and Changing Places facilities BSL Days Recombobulation Room - quiet space Book now - www.WinchesterScienceCentre.org

4—Star Self catering

Chipping Campden, Glos. GL55 6ED Mobile/Text: 07889 649812 Email: info@cotswoldcharm.com Visit our website: www.cotswoldcharm.com

enable life

The diary

Send your upcoming events to editor@dcpublishing.co.uk

NOW UNTIL 28 APRIL

The Cult of Beauty – now open London

Visit Wellcome Collection’s new exhibition, The Cult of Beauty. This free exhibition considers the influence of morality, status, age, race and gender on the evolution of ideas about beauty. Come and question established norms and reflect on more inclusive definitions of beauty.

www.wellcomecollection.org

23 JANUARY

Expert Parent Programme The Hub, Challengers, Stoke Park This training from Challengers – Transition to Adulthood for parents with children aged 14 years plus – helps parents to understand the NHS health system for their child. The Expert Parent Programme aims to improve parents’ confidence and is delivered by trainers with lived experience.

www.tickettailor.com

23-27 JANUARY

Australian Open Wheelchair Tennis Stream online As the year begins, sports fans can count down the days to the Australian Open, showcasing the best talent in international tennis.

Taking place at the end of February, the wheelchair tennis tournaments will see players from around the world compete in singles and doubles games, hoping to take home trophies in each.

Tennis lovers will be able to tune in online, and can keep up to date with matches on social media. www.itftennis.com

1 FEBRUARY

Time To Talk Day Nationwide Every February, Time to Talk Day starts conversations around mental health, helping people to talk to a loved one or friend about how they are feeling. Organisations including Mind and Rethink Mental Illness share resources, campaign materials, and ways to access support.

Events, campaigns, social media posts and conversations on the day can help reduce the stigma around mental health problems. www.mind.org.uk

8 FEBRUARY

Mental Health in Learning Disability Workshop Online This online training from ARC is being delivered as part of the South London and Maudsley NHS Foundation Trust, covering how mental health problems can affect people with a learning disability, and how to provide good support. Attendees will learn about the common signs and symptoms to look out for, and how they can access support.

www.arcengland.org.uk

29 FEBRUARY

Rare Disease Day Worldwide Rare Disease Day aims to generate change for the millions of people living with a rare disease around the world, alongside their network of loved ones and carers. The global event helps to educate the public about rare diseases alongside healthcare professionals. It can also raise awareness to help people living with rare diseases to feel seen, and allows them to connect with others who may understand their situation. www.rarediseaseday.org

enablemagazine.co.uk 49

enable life

Braille Scrabble RNIB have launched their own version of Scrabble complete with clear braille labels on the letter squares, making the family fun game accessible for everyone.

The board comes with large squares with pegs in each corner, to ensure all tiles stay in place.

Tiles show the letters and their value in both print and braille.

£38 ex VAT, RNIB Shop 03031 239 999 www.shop.rnib.org.uk

LIFE

Get up in the night sensor light

CHILDREN

Blackout sensory den

If you frequently get up in the middle of the night, this LED motion sensor light will be a great addition for your home.

The primary function is for help to see the way through your home so you don’t need to leave the main light on and it can also be placed in a wardrobe, cabinet or kitchen cupboard.

This pop-up blackout den provides the perfect spot for children who benefit from sensory exploration. The pod, which can easily fit into a corner of a room, is an enclosed safe space for children to play with the selection of nine sensory toys including a disco ball and light-up wand.

£16.99, Alzheimer’s Shop 03333 660 035 www.shop.alzheimers.org.uk

£82, Sensory Direct 01905 670 500 www.sensorydirect.com

Product picks FASHION

Adaptable footwear Friendly Shoes have designed accessible footwear fitted with unique zip openings, ensuring they are easy to take on and off independently. As well as being lightweight and wide fit, the footwear comes in a variety of colours from black to pink leopard print. The shoe sizes range from, kids size 10 to adults size 13.

From £42.99, Friendly Shoes www.friendlyshoes.co.uk

50 enablemagazine.co.uk

HOME

Combination cutlery set

This cutlery set includes two sizes of ‘knork’ – an innovative piece of cutlery functioning as both a knife and a fork. Its bevelled edge allows for easy cutting using a rocking motion.

The set comes in stainless steel, copper and matte black.

From £18.95, Disability Horizons 0800 567 7812 www.disabilityhorizons.com

Send us details of your products to

editor@dcpublishing.co.uk

MOBILITY

Dashi Mg power chair The Dashi Mg is an ultralightweight powered chair.

Foldable and weighing just 14.22kg, it is easy to transport and transfer making it ideal for car and airline travel. Users can travel up to nine miles on just one single charge.

POA, RHealthcare

0845 146 0600 www.dashrehab.co.uk

PICS: © RNIB; SENSORY DIRECT; ALZHEIMER’S SOCIETY; DISABILITY HORIZONS; FRIENDLY SHOES; DASH REHAB

FAMILY

FOR MORE INFORMATION AND A QUOTE PLEASE

CALL 01565 752800

Providing access for your clients to their home and garden

WHEELCHAIR ACCESS PRODUCTS

with our range of lifts for wheelchair, standing and seated use.

ZEROplus

WHEELCHAIR SHOWER THRESHOLDS

For our full range of products go to our website AT ZERO SEAL SYSTEMS WE OFFER A WIDE RANGE OF THRESHOLD PRODUCTS, DEVELOPED FOR WHEELCHAIR ACCESS.

6.4MM FLAT THRESHOLDS

THESE INCLUDE A RANGE OF 6.4MM HIGH FLAT THRESHOLDS IN VARYING WIDTHS, A UNIQUE SHOWER THRESHOLD WHICH IS AVAILABLE IN TWO HEIGHTS AND A RANGE OF MODULAR RAMPS THAT CAN BE USED IN A VARIETY OF APPLICATIONS. ALL PRODUCTS ARE HELD IN STOCK AND

Full range of internal and external lift solutions

Over 50 years of experience working with professionals

AVAILABLE IMMEDIATELY. PLEASE CALL

Fully compliant to all relevant standards

Comprehensive advice and home survey

US FOR FURTHER INFORMATION OR VISIT

Proudly designed and manufactured in the UK

Full Service and maintenance support

Unit 1-3, Longridge Trading Estate Knutsford, Cheshire, WA16 8PR

www.terrylifts.co.uk enquiries@terrylifts.co.uk

MODULAR RAMPS

OUR WEBSITE.

ZERO SEAL SYSTEMS LTD: 01785 282910 FIND OUT MORE ABOUT US AT: ZEROPLUS.CO.UK

d se Ba s ew vi re

Call Adrian Flux today to make even bigger savings with our newly reduced rates.

00 ,0 25 er ov

If your vehicle has been adapted or modified to cater for your disability, or you’re a carer who needs bespoke cover, experienced insurance experts at Adrian Flux can talk you through our tailor made policies.

on

Car insurance adapted for you

Policy benefits can include: M New for old cover on adaptations M Breakdown cover M Any driver cover available M And many more...

Call our UK team on 0800 081 0462 adrianflux.co.uk Authorised & regulated by the Financial Conduct Authority Trustpilot rating checked on 15th December 2023

Ask us about our new for old cover on adaptations

REVIEW

NISSAN ARIYA Alisdair Suttie test drives the comfortable and stylish Nissan Ariya, as it takes on competitor SUV rivals with its new model

INSIDE It’s tempting to say “never mind the space, feel the quality” with the Nissan Ariya. It really does have a superbly well-made cabin and is a huge step up from what you find in a Nissan Leaf. It compares very favourably to the likes of the Jaguar i-Pace or Tesla Model Y. Nissan hasn’t forgotten about practicality in the Ariya, either. The driver is treated to a supportive seat with plenty of adjustment, and the view in all directions is good. You also get a reversing camera as standard in all models of Ariya to make parking very simple. The clean sweep of the dash

52 enablemagazine.co.uk

incorporates twin info screens that are clear, while the panel below has controls for the ventilation flush-fitted into it.

However, raised buttons would make them easier to use at night. Room for rear passengers is on a par with key rivals, such as the Ford Mustang Mach-E or Skoda Enyaq. The boot can manage a wheelchair placed on its side, but there is a high load sill to lift heavy items up and into the Nissan.

Choose the four-wheel drive version and the boot also loses some of its carrying capacity.

enable motoring

Nissan gets on terms with mid-sized EV SUV rivals with its sleekly styled Ariya

PIP Advance Payment of £2,499.

Find out more at www.motability.co.uk

EQUIPMENT The entry-point to the Nissan Ariya range is the Engage trim that comes with 19-inch alloy wheels, all-round parking sensors and reversing camera, and a long list of safety kit.

You also get black cloth upholstery, climate control, automatic wipers and Nissan’s 12.3-inch infotainment touchscreen with built-in sat-nav and voice control. Move up to the Advance and you gain a powered tailgate, synthetic leather seat coverings, and electrically adjusted and heated front seats. The Evolve trim has an electrically operated panoramic glass sunroof, heated and cooled front seats, suede upholstery, and a Bose stereo with ten speakers.

Every Ariya comes with Nissan’s ProPilot semi-autonomous driving technology, which is not there to do the driving but assist with adaptive cruise control, automatic emergency braking, and lane keeping assistance.

DRIVING You have a choice of two battery sizes in the Nissan Ariya. The smaller, more affordable option with the lower advance payment is the 63kWh model that has a range of 250 miles.

For most drivers, this will be all you need and it has strong performance that’s ideal for motorway driving.

However, if you need a greater driving range, the 87kWh model extends this to 329 miles, which is alongside the best from Kia or Skoda, and this model has very rapid acceleration.

The Ariya is less impressive in the way it deals with gnarly surfaces.

It always feels just a bit too firm compared to a Skoda Enyaq’s suppleness, and the Nissan doesn’t

improve this at higher speeds.

However, it’s easy to guide around town and park thanks to light steering and a good turning circle.

The firm ride does mean decent handling, though the weight of the Ariya tempers this. We’d also like more feel in the brake pedal as it can often be tricky to judge how much pressure is needed for a jerkfree stop.

SUMMARY

Classy looks outside and in, but the Ariya is let down by a mediocre driving experience.

enablemagazine.co.uk

53

DECEMBER 2016

PATHFINDER 17

HAVE YOU GOT A PROBLEM WITH ALCOHOL? ONLY YOU CAN DECIDE!

To answer this question ask yourself the following questions and answer them as honestly as you can 1.

2.

Is drinking making your home life unhappy?

Does your drinking make you careless of your families welfare?

3. Do you drink because you are shy with other people?

4. Is drinking affecting your reputation?

5. Do you drink to escape from worries or trouble?

6. Do you drink alone?

7. Have you lost time from work due to drinking?

8. Has your ambition decreased since drinking?

9. Has your efficiency decreased since drinking?

10. Is drinking jeopardising your job or business?

11. Have you ever felt remorse after drinking?

12. Are you in financial difficulties as a result of drinking?

13. Do you turn to or seek an inferior environment when drinking?

14. Do you crave a drink at a definite time daily?

15. Does drinking cause you to have difficulty in sleeping?

16. Do you want a drink the next morning?

17. Do you drink to build up your confidence?

18. Have you ever had a complete loss of memory as a result of drinking?

19. Has your Dr ever treated you for drinking?

If you have answered “YES” to any one of the questions, there is a definite warning…

If you have answered “YES” to any two, the chances are that you have a problem…

If you have answered “YES” to three or more, you most certainly have a problem…

“THE ONLY REQUIREMENT IS A DESIRE TO STOP DRINKING” Take action now and give us a call on 0800 917 7650… We are here to help!

enable finance

YEARS OF PIP As the UK marks the ten-year anniversary of Personal Independence Payment, disabled people’s organisations are questioning the benefit’s true impact and what needs to change

A

t the end of 2023, the UK marked a significant milestone in the welfare landscape: a decade of Personal Independence Payment (PIP). Since its introduction in 2013, PIP has been a cornerstone of the government’s efforts to support disabled people, gradually replacing Disability Living Allowance (DLA). While PIP has undoubtedly had a positive impact for many people, there is still work to do to ensure it meets the needs of disabled people across the UK.

LESSONS

A decade of PIP has been both a cause for reflection and a time for measured assessment. PIP was originally designed to provide financial support for disabled people, enabling them to lead independent and fulfilling lives.

However, this hasn’t been without its challenges.

A report from the MS Society, titled 10 Years of PIP, sheds light on the experiences of people living with multiple sclerosis, one of the most common conditions that qualifies for PIP. The report reveals that the PIP assessment process has been fraught with issues, leading to significant stress and anxiety for applicants. This has resulted in people with MS feeling

unsupported and undervalued, instead of leaving them empowered and more independent.

IMPACT

For many people, it has provided muchneeded financial support, allowing them to access crucial services, aids, and adaptations that enhance their quality of life. For others, the experience has been marred by prolonged delays in assessment and inconsistent decisionmaking. The MS Society’s findings indicate that many applicants feel that the assessment process does not accurately capture the realities of their condition, leading to unfair decisions about their entitlements for support.

REFORMS

As we enter the second decade of PIP, it is essential to take stock of its strengths and weaknesses and advocate for reforms that will better serve the needs of disabled people. The MS Society has launched the #10YearsOfPIP campaign, calling for changes that will make the system fairer and more compassionate.

Some of the key reforms proposed include a transparent and compassionate assessment process, overhauled to better reflect the challenges faced by disabled people.

Transparency, consistency, and a

more compassionate approach are paramount.

Mobility is a crucial aspect of independence for many disabled people. The current criteria for mobility support must be re-evaluated to reflect the real-life experiences of disabled individuals. Delays in assessment can lead to unnecessary stress and hardship: streamlining the decision-making process is essential to prevent this in the future.

To achieve better outcomes, the government has to engage with disabled people and their representative organisations to gather input and feedback, ensuring that PIP remains responsive to their needs, and helps rather than hinders independence.

A decade of PIP marks a significant milestone in the journey towards properly supporting disabled people in the UK. While there have been successes, it is vital that key issues are addressed to make it a more effective and compassionate system.

FOR MORE INFORMATION Keep up with the #10YearsOfPIP campaign through the MS Society (www.mssociety.org.uk).

enablemagazine.co.uk

55

enable life

THE RISE OF AI Artificial intelligence is on the rise, becoming increasingly intertwined in our everyday lives. The technology is new and ever-evolving but the algorithms can unwittingly discriminate against the disabled community

A

rtificial intelligence (AI) is a new phenomenon that can improve disabled people’s lives, while also showing bias against them within the software.

AI has been a useful aid for disabled people, including software that allows people to navigate smart devices through voice control. But these technological advancements can easily leave some users feeling isolated and left behind if inclusion isn’t considered.

WHAT IS AI?

When you think of AI, self-driving cars, online chatbots, or Amazon’s trusty home help Alexa will come to mind.

While the topic can sound almost like science fiction, AI has in fact been around since the 1950s and was then defined by a machine’s ability to complete a task that would have previously required human intelligence.

These technological advancements are at the forefront of conversations in our current climate, with many testing the boundaries of what AI

is and what it can do. As part of our society’s shift towards AI, viral TikTok trends frequently pop up that see users submitting photos to an image generator.

TIKTOK CHALLENGE

One specific social media trend, dubbed the TikTok Yearbook challenge, sees users submit a selection of photos of themselves to an image generator to use their likeness. AI generated images refer and use people’s likeness from existing photos

to create something different. The generator transforms the user’s photos into a heavily filtered, airbrushed version of themselves posing as a 90s cheerleader or jock in a varsity jacket.

As part of this trend, disabled people have seen their visible impairments or mobility aids completely erased. Since the invention of social media, there has been discourse on the impact that filters have on self-esteem and body confidence. Now, we need to have discussions about the impact of AI’s disability erasure and how to fix this.

AI INCLUSIVITY

There needs to be disabilitycentred research, development and frameworks in place

The erasure of disabilities is harmful and not reflective of the diverse society we live in, but how can we fix it? Since the creation of the EU AI Act, organisations including EU Disability Forum and various communities have been vocal about the necessary focus on disabilityspecific cases, vocabulary and legal frameworks to ensure fairness and transparency.

AI is only as good as the information it is fed, and for the software to improve it must earn the trust of users, allowing the systems to grow and learn.

How will the software ever gain the trust of the disability community when it was not built with inclusivity in mind and promotes erasure?

The simple answer is that these systems need to change. Disabled people must be in the room when creating advanced technology to ensure discrimination does not occur. There needs to be disabilitycentred research, development and frameworks in place to ensure inclusivity, transparency and accuracy when working with artificial intelligence.

FOR MORE INFORMATION Visit the EU Disability Forum (https://www.edf-feph.org/) to learn more about artificial intelligence and its impact on disabled people.

56 enablemagazine.co.uk

We all welcome a little extra assistance now and again, particularly when travelling alone. Thistle Assistance is an initiative to help you feel safer and more comfortable when using public transport.

thistleassistance.com

www.naidex.co.uk

100+ exhibitors Informative speakers Adaptive climbing wall Mobility test track Village green

Register Free

20-21 March 2024 NEC, Birmingham

WIN

enable competition

AN AMAZON ECHO SHOW 5

Enable readers have the chance to win a brand-new HD smart screen

I

ncrease your independence in 2024 with our new exciting competition. We are giving Enable readers the chance to win their very own Amazon Echo Show 5, fit with a whole host of new accessibility features.

Alexa has become a household staple for many, but the trusty home help can be an additional support for disabled people. With the Echo Show 5, you can use your voice to set timers and alarms, create reminders, check the weather and traffic reports as well as using the internet hands free.

Plus, through voice commands you are able to unwind with a relaxing playlist, watch your favourite show on the display screen, or control your home through compatible smart home devices. The new model comes with improved audio settings, an additional mic improving Alexa’s responsiveness and greater voice clarity. The Echo Show 5 provides great support for building a successful routine and promoting independence.

The device comes with a VoiceView setting that reads aloud items shown on screen, as well as colour correction options to modify the screen to assist with impaired vision.

Alongside these key features, the sleek, compact design of the Echo Show 5 means it will fit perfectly into any space.

HOW TO ENTER Simply send us your name, contact details and where you picked up your copy of Enable.

BY EMAIL competitions@dcpublishing.co.uk quoting Echo Show 2024 ONLINE www.enablemagazine.co.uk/echoshow2024

BY POST Competition, DC Publishing Ltd, 198 Bath Street, Glasgow, G2 4HG All entries must be received by Thursday 29 February 2024. Good luck!

TERMS AND CONDITIONS: All entries must be received by Thursday 29 February 2024. The prize is one Amazon Echo Show 5 which will be sent to the winner. The prize is non-transferable, non-refundable, there is no cash alternative and cannot be sold to another party. The contents of the prize may differ from the images and descriptions included here. One entry per household. The publisher’s decision is final. If you do not wish to receive further communications from Enable Magazine, include ‘opt-out’ in your entry. This competition is not being run in conjunction with Amazon.

enablemagazine.co.uk

59

Delivering exceptional programmes and rich learning environment for young people, aged from 16 to 25 years, with special educational needs and disabilities, including: • Learning and physical disabilities • Autism • Behaviours of concern • SLD and PMLD We support our young people to achieve and challenge them to do more. Our students regularly exceed what they and others thought possible.

Come and have a look!

Why Derwen?

Exceptional pastoral care and student support Excellent outcomes Independence development Unrivalled sports, leisure and wellbeing activities Scan the QR code to view what pathways and programmes we offer

Visit one of our open days and see everything we have to offer!

Thursday, 29 February 2024 Thursday, 9 May 2024 Book early as places fill up fast!

For any enquires or further information, please contact the Admissions Team admissions@derwen.ac.uk 01691 661234 ext 401

Short Breaks at Derwen offers adults with learning disabilities and associated needs the opportunity to take a break and enjoy themselves.

We build your programme of activities around what you enjoy doing.

For adults It may include: with learning • cooking disabilities • swimming • trips to local attractions • games console 01691 779243

2022

A place of possibility

An initiative of Derwen shortbreaks@derwen.ac.uk College Charity www.shortbreaksatderwen.co.uk RCN: 1153280

Gobowen, Shropshire SY11 3JA 01691 661234 www.derwen.ac.uk

enable employment

NEW YEAR,

NEW CAREER

A new year can be the perfect time for a fresh start. If you’re feeling unfulfilled in your job, this is a great chance to re-evaluate your passions and consider retraining

I

t’s never too late to retrain and pursue a new career, especially after acquiring a disability that changes how you work. While the job hunting process can feel long and tedious, it can also be exciting with so many careers to choose from.

CONSIDER YOUR OPTIONS

As you start your search for a new role, there are important factors to consider: the culture of a company, their approach to inclusion and reasonable adjustments, their working methods and how these fit your unique needs.

During the interview process, you can gauge whether a particular organisation is a good fit - we recommend looking out for companies that have signed up to the Disability Confident scheme.

Under the Equality Act 2010, employers must make reasonable adjustments starting during the interview process. This could be questions being provided ahead of an interview, having materials provided in a different format, having a British Sign Language (BSL) interpreter present or allowing an interview to take place digitally rather than in person. The same goes for when you have accepted a position: you are legally entitled to the reasonable adjustments you need to do your job to the best of your abilities.

DISCLOSING

Disclosing a disability can be a tough decision, whether it is visible or nonvisible. When retraining in a new field, it is difficult to decide if you will tell your new employer about your disability during the hiring process, after accepting the job or once you have started your new role. While informing a potential employer about your disability isn’t a requirement, especially if you are worried about discrimination, it could be a good method to gauge their attitude about any accommodations you may or may not need.

ACCESS TO WORK

The Access to Work scheme is a grant that provides personalised support to disabled people who are in paid employment, self-employed or undertaking an apprenticeship. You can get help under this scheme if you are disabled, have a mental health condition or a long-term health issue that has impacted your ability to work.

This removes the financial burden of specialist equipment or support not just from you, but your employer, allowing you to progress in your career.

FIND SUPPORT

When choosing an area to retrain in, it is important to remember that there are many places where you can find support and help. Mencap offers a variety of different advice for people thinking about changing career and works with disabled people to enhance

their skills and find paid work.

Pluss is a social enterprise that supports disabled people to move towards and into employment.

The organisation runs the Work Choice Programme on behalf of the Department for Work and Pensions.

Evenbreak is a job board specifically for disabled candidates featuring roles from inclusive employers across the UK. The site also features a helpful blog filled with advice for disabled people looking to retrain in a new industry.

FOR MORE INFORMATION To learn more about the Access to Work scheme and what you are entitled to, visit www.gov.uk/access-to-work For more information on retraining and career tips, visit: Mencap (www.mencap.org.uk), Pluss (www.pluss.org.uk), or Evenbreak (www.evenbreak.co.uk).

enablemagazine.co.uk

61

enable employment

Jane Hatton Jane is the founder of Evenbreak, a social enterprise run by and for disabled people, with a specialist job board and a career hive.

Send your questions to editor@dcpublishing.co.uk

EMPLOYMENT Q&A

NEURODIVERGENT NETWORKING In her column Jane Hatton, founder of Evenbreak, answers your employment questions

Q

I’m looking for work, and everyone I know keeps telling me I need to ‘network’. However, I’m autistic and have massive anxiety about going to big business meetings where I don’t know anyone and will be expected to start conversations about employment. How do I tell them that networking is not going to work for me?

A

Ask any recruiter, and they will tell you that networking plays an essential role in your job search. The old saying that ‘it’s who you know, not what you know’ holds as true today as it ever has. But for many disabled people like you, turning up to networking events in person may not be possible, whether due

62 enablemagazine.co.uk

to social anxiety or inaccessible venues.

However, online networking may still be an option for you and there is still lots we can do to make helpful relationships without having to meet anyone in person. There is the added bonus that you have time to think about your responses and re-write them as many times as you like before posting them, unlike in person events where you’re expected to answer straight away.

Having a great profile on LinkedIn is a good start, and you can build on this by showcasing your skills and connecting with relevant people. Join appropriate groups, ask questions, offer advice and share useful links. Make yourself noticeable as someone who is interesting and knowledgeable in your field. You can write articles or even start your own groups related to your industry.

Connect with new people on LinkedIn – perhaps you could ask for introductions from your existing connections or look at the suggestions LinkedIn offers. It’s better to personalise your message rather than using the default one that is suggested. You can grow your list quite quickly. However, just grow a big list but

to build useful relationships with the people you’re connected to.

Facebook is seen as less business-like and more social than LinkedIn, but can still be good for connecting with new people. You can join groups and follow pages which may be of interest.

The important thing to remember when networking, whether online or in person, is that it’s a two-way process.

The aim is to add value for the other person, not just be hoping you will get something from them. Who can you introduce them to that might be helpful? Can you share their content?

Are there articles you could point them to that could be useful?

Networking is about making effective relationships and the benefits aren’t usually immediately apparent. Ensuring that people know about you and can see that you have something of value to contribute can be very helpful when looking for opportunities.

Visit the Evenbreak website to access candidate resources free of charge: www.evenbreak.co.uk hive.evenbreak.co.uk

We’ve equality at our core.

We’ve been named as a disability confident employer by Jobcentre Plus and have a positive attitude towards job applications from disabled people.

As we progress, we’ll continue to improve the way that we support our staff, customers, and stakeholders, regardless of disability, gender, ethnicity, age, religion, or sexual orientation.

Support to work in the way that’s right for you Flexible working patterns, different office locations, working from home Work that makes a difference

Our Equality, Diversity, and Inclusion strategy is a priority at RoS. It’s not a one off or an event, it is an ongoing process, and we will work for our colleagues to feel safe, supported and included at work.

We want to be an employer of choice, attracting and retaining the best and widest possible pool of talent.

www.audit-scotland.gov.uk/careers

ONE TO WATCH

3

Collaborating for Equity, Diversity and Inclusion Auditing Coaching

Consultancy

Making your places, spaces, policies and practices accessible and inclusive email: info@embed.org.uk

www.embed.org.uk

ACCESSIBLE APPRENTICESHIPS Being disabled should never limit your options in your career, and apprenticeships can be a great way to get into your chosen field

W

hen it comes to choosing a career, apprenticeships can be a great first step into your chosen industry.

They allow more flexibility and the ability to earn a wage while learning first-hand. An apprenticeship gives you a mixture of higher education and gaining experience in your chosen field, covering all sorts of industries, from construction to hair and beauty.

An apprenticeship is a wonderful opportunity to expand your knowledge, develop new skills and get used to a workplace environment.

Throughout your training, you will receive guidance and support from your colleagues and mentor, who will look after you during the programme.

You will also be studying alongside your work, which could take place at a local college, with an independent training provider or online.

At the end of your training, you will leave with a nationally recognised qualification and the experience to start working. Future employers will be impressed by your CV as an apprenticeship shows that you’re a hardworking candidate.

There are also part-time options available, which might work better

At the end of your training, you will leave with a nationally recognised qualification and the experience to start working

64 enablemagazine.co.uk

for disabled candidates as you will have more flexibility with your time. However, that means your apprenticeship will last longer to ensure you have enough time to complete the training.

Currently, the minimum wage for an apprentice aged between 16 and 18 is £5.28, while apprentices aged 19 or over in their first year are also on this same rate. Anyone aged 19 or over who has completed their first year is then entitled to the National Minimum Wage for their age group, which starts at £7.49 for people aged between 18 and 20.

APPRENTICESHIP TYPES This February, employers and education providers will put the spotlight on the programmes they have available during National Apprenticeship Week. Taking place from 5-11 February 2024, this will provide new information and resources on apprenticeships and vocational education.

Throughout the UK, the levels of apprenticeships and what is on offer varies depending on location.

In England, there are four levels: Intermediate, Advanced, Higher and Degree Apprenticeships whilst in Scotland, there are Foundation, Modern and Graduate apprenticeships.

England:

Intermediate Apprenticeships are equivalent to GCSE standard; Advanced Apprenticeships are equivalent to two A-level passes; Higher Apprenticeships are equivalent to the first year of an undergraduate or foundation degree; and Degree Apprenticeships are equivalent to undergraduate or master’s degree.

The Apprentice Support Centre (www.apprenticeships.gov.uk) in England has a dedicated team who can answer any questions and help anyone with a disability throughout the application process.

Scotland:

Foundation Apprenticeships are available in the 5th and 6th year of secondary school but are not paid; Modern Apprenticeships are paid positions where you’ll leave with industry-recognised credentials; and Graduate Apprenticeships allow you to earn a degree and work simultaneously.

It’s important to think carefully about what type of apprenticeship you’d like to apply for, as they are all very different from each other.

Similarly to The Apprentice Support Centre in England, Apprenticeships.scot (www.apprenticeships.scot) can give relevant advice in Scotland.

ADJUSTMENTS Under the Equality Act 2010, your employer, university or training

enable employment

provider has a duty to provide you with reasonable adjustments if you ask for them.

Your reasonable adjustments could be asking for extra time during an exam, a designated parking space, or flexible learning hours. Everyone is different, and your individual needs will vary from the next person, but Disability Rights UK (www. disabilityrightsuk.org) has a reasonable adjustment form that can give you an idea of the type of things you are entitled to ask for if required.

To get any reasonable adjustments, you must ensure your employers are aware of your disability and that you ask for what you need, as they will not be put in place automatically.

Similarly, disabled people undertaking an apprenticeship can use

the UK Government’s Access to Work scheme (www.gov.uk/access-to-work).

This can mean a grant to help pay for practical support within your role, transport getting to and from work, or support from management regarding your mental health at work.

HOW TO APPLY To apply for an apprenticeship, you will need a CV and a cover letter.

The National Careers Service (https://nationalcareers.service.gov.uk/) has a team of expert advisors who can help you write a CV and support you throughout the application process.

Your CV is your chance to show an employer why they should select you over another candidate, so check it twice before you submit it.

After you’re happy with your CV, you can look and apply for roles on the Find an Apprenticeship Service (www.gov. uk/apply-apprenticeship) in England.

The website has a feature which allows you to filter out any employers who are not disability confident.

In Scotland, Apprenticeships Scot (www.apprenticeships.scot) has an upto-date database of current vacancies that will redirect you to company sites to apply.

Take the time to look into any apprenticeships before you send off your application so that you can be confident they will be the right fit for you and your needs.

FOR MORE INFORMATION You can find out more about apprenticeships in the UK by visiting the UCAS hub (www.ucas.com)

enablemagazine.co.uk

65

enable life

Speed of Sight

DRIVING INCLUSIVITY FORWARD

Mike Newman

Founded by the world’s fastest blind racer, Speed of Sight is an incredible charity that wants to help anyone get behind the wheel of a race car

S

ince 2012, Speed of Sight has given people living with significant and challenging disabilities the opportunity to drive on race circuits across the UK. With specially adapted cars that allow anyone from the age of seven and up to get involved, the idea is to give everyone the chance to become a race car driver – even if just for twenty minutes.

ACHIEVING THE IMPOSSIBLE

Mike Newman, a car fanatic and the world’s fastest blind racer, started Speed of Sight with the help of his friends and family after attending hundreds of car shows and wishing he was on the track.

“Since I was a small boy, I’ve loved cars,” remembers Mike. “I started to

meet people at different car events and car shows who had become disabled through illness or accident. Many of them were forced to relinquish their driving licence and lost the freedom and enjoyment that they used to take for granted.

“We started to think about how we could, finally, for a little while, give them that enjoyment and excitement again.”

In setting up Speed of Sight, Mike has done just that, offering people living with disabilities tailored driving experiences up and down the country.

But for Mike, it’s also been the chance to become a race car driver himself – something he once thought had been “robbed” from him.

“I got to a stage in my life where I wanted to see if there was a way to enjoy race cars for myself and see if I was capable of controlling a vehicle

at high speed whilst mitigating all the risks,” confesses Mike. “And I just love it; I just really find it exciting.

“For the few minutes when I’m in control of the car, I’m having the same fun and excitement that all our participants do.”

LOSING YOUR SIGHT

Born with bi-lateral glaucoma, Mike has always been visually impaired. By his 15th birthday he had bi-lateral ocular prosthetics. He explains the challenges that come with finding yourself in that position.

“When you’re losing your sight, it’s very dramatic. Your life is changed irrevocably, and you will never live the way you used to before, which is extremely scary and very frightening,” admits Mike. “I think for someone with a disability that completely changes the way they live, getting behind the wheel can be very liberating for them.”

A SENSE OF FREEDOM

As well as giving disabled people “a complete sense of freedom”, Mike says that the race circuit also teaches them a hugely important lesson about their own abilities.

“I think giving people the opportunity to enjoy the excitement of being in a car and in control does have a big impact on their outlook,” explains Mike. “It demonstrates to them that you can still enjoy excitement, feel exhilaration and still do things very, very capably.”

FOR MORE INFORMATION Visit www.speedofsight.org to find out how you can book an upcoming driving experience.

66 enablemagazine.co.uk

Find your perfect place.

As a leading recruitment outsourcing provider, Guidant Global can offer you direct and exclusive access to great jobs with some of the UK’s top employers.

We’re also a Disability Confident Leader, and our award-winning approach to disability inclusion is building careers and changing lives.

criteria required for the job) and please don’t forget to tell us about any adjustments you might need during the recruitment process.

It goes without saying, we welcome applications from people with disabilities! In fact, if you have a disability, we’ll guarantee you an interview for any internal role (assuming you meet the minimum

If you would like to find out more about inclusive careers at Guidant Global, or search for roles with our amazing clients, please visit our website. jobs.guidantgroup.com

20220 Guidant Global Enable Ad AW.indd 1

17/12/2018 10:57

‘FULL OF HEART, DEPTH AND DARKNESS’ TIME OUT

THEATRE ROYAL DRURY LANE, LONDON Book for the next Relaxed Performance Sunday 28 April 2024, 1pm Learn more at frozenthemusical.co.uk/access

© Disney

THE GUARDIAN