Enable November / December 2019

The UK’s leading disability and lifestyle magazine

enablemagazine.co.uk

GET SUPPORTED Ahead of Carers Rights Day, do you know your rights?

November/December 2019

INTO WORK

A look at the top disability confident employers in the UK

MS TREATMENT

How is stem cell therapy changing the face of MS treatment?

NEW YEAR GOALS

POWER 100

Why the Disability Power 100 list is so important for disability

Enable interviewees look to 2020

E G A T S E H T N O Y T I DISABIL year's Strictly Come Dancing this g rin du lity abi dis on t ligh a nes shi y yle Paralympian Will Ba

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Welcome The weather outside is frightful, but this issue of Enable is delightful

The UK’s leading disability and lifestyle magazine

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EDITOR’S PICKS...

18 DISABILITY WORLDWIDE THIS IDPWD Countries across the world are shining a light on disability on 3 December; what can you expect from International Day of Persons with Disabilities 2019?

30 FACING THE FRONTIER OF MS TREATMENT As stem cell treatment is tested as MS treatment, we investigate the benefits of the experimental treatment.

74 TOP INCLUSIVE EMPLOYERS Going into 2020 we spotlight the top Disability Confident employers in the UK.

rapped up in woolly gloves and scarves, there’s no denying that winter has arrived; but, never fear, so has the last issue of Enable for 2019. And what an issue we have for you.

Nothing says Christmas more than Strictly Come Dancing.

Personally, I can’t get enough of the glitter and glamour of the dancefloor, that’s why it was such a privilege to speak with Paralympian and Strictly 2019 contestant, Will Bayley.

Will chats about shining a light on disability on page 10.

As a carer you’re continually giving and helping a loved one; it can not only be hard to find time for yourself, but to understand what rights you have. Over on page 13 we take a loot at Carers Rights Day to help guide you to access all the support you deserve.

There’s no denying the festive season is all about giving back, and I can’t overlook the fantastic work everyone at Enable HQ has put in over the year to help raise funds for a range of charities. From baking for the Alzheimer Society’s Cupcake Day to walking 26 miles (and more) for Glasgow’s Children Hospital, SAMH and the MS Society during this year’s KiltWalk in Glasgow and Edinburgh – I’m excited to see what we do in 2020 to continue raising awareness.

Have you got any exciting plans for the turn of the year?

Make sure to get in touch using the details in the box to the right.

Until next time, we wish you a wonderful Get in touch festive season and joyful New Year. editor@enablemagazine.co.uk facebook.com/enablemagazine

Lorne Gillies, Editor

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EDITOR Lorne Gillies lorne.gillies@dcpublishing.co.uk STAFF WRITERS Emma Storr emma.storr@dcpublishing.co.uk Saskia Harper saskia.harper@dcpublishing.co.uk EDITORIAL CONTRIBUTORS Tim Rushby-Smith Alisdair Suttie DESIGN AND PRODUCTION Lucy Baillie lucy.baillie@dcpublishing.co.uk

ENABLE MAGAZINE www.enablemagazine.co.uk

FAMOUS FACES

We bumped into, The Big Yin himself Billy Connolly. The famous Scot has been open about his experiences living with Parkinson’s disease and how it has impacted his life.

Marian, Lucy and Lorne walked an impressive 52,000 steps this year during the KiltWalk raising funds for SAMH and Glasgow Children’s Hospital.

PUBLISHER Denise Connelly denise@dcpublishing.co.uk

SALES Marian Mathieson marian.mathieson@dcpublishing.co.uk

Behind the scenes

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ONLINE

Can’t wait for more Enable?

Don’t miss all the latest news, interviews and inside information from the team at Enable HQ over on the website.

Top picks include our interview with Christine McGuinness.

©DC Publishing Ltd 2019. All rights reserved. No part of this publication may be reproduced or used in any way without prior written permission from the publisher. The views expressed in this magazine are not necessarily those of DC Publishing Ltd. The publisher takes no responsibility for claims made by advertisers within the publication. Every effort has been made to ensure that information is accurate; while dates and prices are correct at time of going to print, DC Publishing Ltd takes no responsibility for omissions and errors.

WIN

Head to page 39 to see how you could win a luxury festive hamper. Ho ho ho!

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What’s inside

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November/December 2019

Interview

10 DISABILITY AND THE GLITTERBALL Paralympian Will Bayley dons his dancing shoes to chat disability and Strictly Come Dancing.

Voices

16 TALKING ABOUT THE POWER 100 We speak with one member of the 2019 Shaw Trust Power 100 list.

29 THE INSPIRATION GAME Our columnist Tim RushbySmith talks being inspired during wheelchair basketball.

54 ON THE JOB WITH A GUIDE DOG TRAINER Guide dogs are incredibly beneficial, but how are they trained? We go behind the scenes with a guide dog trainer.

Health

30 FACING THE FRONTIER OF STEM CELL TREATMENT 4

A stem cell specialist discusses the innovative MS treatment.

36 UNDERSTANDING DIABETES Diabetes can be disabling, an expert shares what you need to know.

Care

13 THE POWER OF COMMUNITY IN CARE Ahead of Carers Rights Day, are you aware of your rights?

Spotlight

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18 DISABILITY WORLDWIDE THIS IDPWD A look at the global changes to make the future accessible.

24 2019 REFLECTIONS AND RESOLUTIONS Familiar faces chat with Enable about their goals for 2020.

40 ACTION AGAINST DOMESTIC ABUSE With more disabled people experiencing domestic abuse, what guidance is available?

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Motoring

56 REVIEW: KIA PROCEED Alisdair Suttie gets behind the wheel of the Kia Proceed

Life

21 CHALLENGING BULLYING ATTITUDES Discover how to overcome bullying because of disability.

26 JUST ASK, DON’T GRAB Learn how one woman is encouraging the general public to just ask.

43 DIARY The top dates for your diary this November/December.

45 CHRISTMAS CONFIDENCE Get confident this festive period when heading out and about.

48 SENSORY-FRIENDLY CHRISTMAS Christmas can be a sensory

overload, but support is available when planning ahead.

59 PRODUCT ROUNDUP Our selection of must have products for independent living.

Finance

33 BEYOND PURPLE TUESDAY Mike Adams OBE discusses the future of the inclusive high street.

34 SAVVY SHOPPING THIS CHRISTMAS Spend efficiently this Christmas.

51 FINANCIALLY FIXED A financial expert reveals how to enter 2020 financially stable.

Sport

65 THE LIFE-SAVING EFFECT OF SPORT After an accident in Vietnam, judo star Stephanie Inglis reveals how she got back on top.

Education

70 ACCESSIBLE APPRENTICESHIPS Earn while you learn with an apprenticeship.

72 LEARNING ON YOUR TERMS Is distance learning the educational route for you?

Employment

68 GET INTO WORK WITH NHS LOTHIAN Could a career with NHS Lothian be right for you?

74 TOP INCLUSIVE EMPLOYERS We discover the top UK employers going the extra mile.

77 STRESS: CLOCKING OUT Stress is debilitating, but it’s time to talk to reduce stigma.

81 STEPPING STONE TO EMPLOYMENT Who are the community projects upskilling disabled workers?

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News ALZHEIMER’S DRUG CREATED TO SLOW DEMENTIA A US DRUG COMPANY has announced they have created the first therapy to slow Alzheimer’s disease, and are ready to bring it to the market.

Biogen, is believed to be seeking regulatory approval in the US for the new drug; there are no drugs that can reduce the effects of Alzheimer’s disease and dementia at present.

The “ground-breaking” drug, called aducanumab, should have paperwork

filed by 2020. Approval of drugs can take between one and two years, and – if successful – Biogen aim to offer the drug to patients who previously enrolled in clinical trials.

Biogen’s chief executive Michel Vounatsos said: “We are hopeful about the prospect of offering patients the first therapy to reduce the clinical decline of Alzheimer’s disease.”

With an estimated 850,000 people

in the UK alone living with Alzheimer’s, aducanumab is a pioneering step in the right direction to, potentially, change the lives of people living with Alzheimer’s and dementia.

Hilary Evans from Alzheimer’s Research UK added: “People affected by Alzheimer’s have waited a long time for a life-changing new treatment and this exciting announcement offers new hope that one could be in sight.”

Terminally ill man challenges UK law on assisted dying PHIL NEWBY HAS CHALLENGED the UK’s current law on assisted dying and is waiting to hear the verdict if his High Court case can proceed.

Diagnosed with motor neurone disease (MND) in 2014, Phil is calling on the court to reassess the current law so people living with terminal conditions can have a right to a “civilised ending”.

Currently, assisting a death in England and Wales holds a prison sentence of up to 14 years. Phil – who can no longer walk or use his hands and lower arms – has raised £42,000 for the legal challenge.

Paul Bowen QC said: “The claimant wishes to be able to choose an assisted death,

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at home, when he considers the emotional and physical discomfort of existence outweighs the enjoyment he still receives from living.

“That point has not yet been reached, but it is foreseeable... with the comfort of knowing he had that option available, the claimant would be better able to enjoy the time he has left.”

Opposition to Phil’s request argue the case should be rejected as the High Court has previously ruled on similar matters.

In November of 2018, Noel Conway – who is also living with MND – lost his legal battle to change the law on assisted dying at the Supreme Court, the UK’s highest court.

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Fuel economy and CO₂ results for the Mitsubishi Range (excluding Outlander PHEV). Mpg (l/100km) (combined): 32.5 – 37.7 (8.7 – 7.5). CO₂ emissions: 169 - 154 g/km*.

Fuel economy and CO₂ results for the Outlander PHEV. Mpg (l/100km) (weighted combined): 139.7 (2.0). Electric energy consumption (weighted combined): 3.68 miles/ kWh. CO₂ emissions (weighted): 40 g/km*. Equivalent all-electric range: 28 miles.

The Motability Contract Hire Scheme is administered by Motability Operations PLC (Registered Company No. 1373876), City Gate House, 22 Southwark Bridge Road, London, SE1 9HB. To qualify you must be in receipt of the Higher Rate Mobility Component of the Disability Living Allowance, the Enhanced Rate of the Mobility Component of the Personal Independence Payment, War Pensioners’ Mobility Supplement or the Armed Forces Independence Payment which will be taken in lieu of the four weekly rental. Models shown are the Outlander Design automatic, ASX Dynamic petrol manual, Eclipse Cross Verve petrol manual and Outlander PHEV Design. Terms and Conditions apply. Please ask the dealer for full details. Rentals valid for applications placed between 1st October and 31st December 2019. 1. Apple CarPlay is a trademark of Apple Inc. Android is a trademark of Google LLC, registered in the U.S. and other countries. 2. Please note that Mitsubishi cannot guarantee compatibility with all mobile phones and Bluetooth devices with the handsfree system fitted to this vehicle. Please check with the mobile phone manufacturer for further information on compatibility. Fuel consumption, CO₂ and electric range figures shown are for comparability purposes. Outlander PHEV fuel consumption and CO₂ figures shown were obtained using a combination of battery power and fuel. The Outlander PHEV is a plug-in hybrid vehicle requiring mains electricity for charging. Only compare fuel consumption, CO₂ and electric range figures with other cars tested to the same technical procedures. These figures may not reflect real life driving results, which will depend upon a number of factors including, accessories fitted (post-registration), variations in weather, driving styles and vehicle load. *There is a new test used for fuel consumption and CO₂ figures. The CO₂ figures shown however, are based on the outgoing test cycle and will be used to calculate vehicle tax on first registration.

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enable news

News Scotland’s compulsory mental health detentions at record high LAST YEAR SAW THE number of people in Scotland requiring compulsory mental health treatment reach a record high.

Rates of emergency orders used in a crisis have risen sharply amongst teenagers in the last decade, as figures from the Mental Welfare Commission revealed.

There were 6,038 detentions under the Mental Health Act, with data showing

big differences in the rates of detention across health boards.

Further figures showed that among women, those in the 18-24 age group were most affected with 185 cases. And young men aged 16-17 saw the greatest increase in emergency detention in 2018.

The Scottish government has stated an independent review examining the increase in compulsory mental health detentions will be released in May, 2020.

INFLUENTIAL DISABLED PEOPLE RECOGNISED ON SHAW TRUST POWER 100 THE ANNUAL PUBLICATION CONTAINING the 100 most influential disabled people in the UK has been revealed in the Shaw Trust Power 100.

Initially introduced four years ago, the Shaw Trust Power 100 has become a staple publication in the disabled community, providing biographies of the top 100 influencers with disabilities in the UK. Aiming to further inclusion across Great Britain, this year’s list includes Suzanne Bull MBE from Attitude is Everything, Mike Adams OBE, Daniel Biddle and Euan MacDonald MBE who founded Euan’s Guide.

Read our interview with actress and campaigner Kim Tserkezie, who was also announced on the list, on page 16.

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Baroness Jane Campbell

Director calls on TV industry to address disability diversity AWARD-WINNING SCREENWRITER, Jack Thorne has said disability is being ignored in the conversation about diversity in television.

The writer and director, who cowrote This is England ’88 and ’90, and is now working on the new His Dark Materials adaptations, is calling for meaningful representation for the disabled community.

Writing in the Radio Times, Thorne commented: “I ask that parts be specifically defined as disabled and I’m told we’ll see disabled actors for the role, but they are almost never cast.”

Now, Thorne has called for disabled diversity targets for drama schools, training programmes, entertainment companies and agencies, alongside those with targets required to do better: Thorne is campaigning for greater disability representation.

Within his career, Thorne has continually advocated for disabled representation, with the BAFTAnominated series Cast Off saw every character played by a disabled actor.

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Disability and the Glitterball Ranked as the world’s number one Paralympic table tennis player, Will Bayley MBE speaks to Lorne Gillies about swapping his tennis stroke for the cha-cha-cha during this year’s Strictly Come Dancing

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s the sun shone down on London during the 2012 Summer Paralympic Games, Will Bayley won the silver medal during the table tennis tournament. Four years later, Will went above and beyond to bring home gold during the Rio 2016 Summer Paralympic Games. In autumn of 2019, Will was announced as the next contestant on Strictly Come Dancing.

Taking a step away from the table, Will is moving in new circles to dance his way to the top (which is well out of his comfort zone as he admits) and shine the glitterball on disability.

Playing at the Paralympic Games

SPOTLIGHT

“I think it’s good for all of us to learn more about it,” emphasises Will, who has arthrogryposis which affects all four of his limbs. The term arthrogryposis is used to describe over 300 conditions that cause multiple curved joints in the body from birth. For Will, he overcame many challenging experiences including battling cancer at the age of seven.

But, it was overcoming cancer which saw Will discover a love and passion for table tennis after he began playing during his recovery. Whilst honing his table tennis skills, Will felt there was a distinct lack of representation for disability when he was growing up.

And, unfortunately, this is something many disabled people have felt in the past, too.

“The first sportsman I knew with the condition was the Paralympic dressage champion Sir Lee Pearson, and it’s so important to see these positive stories,” enthuses Will, who is now sharing his story on Strictly Come Dancing to put a spotlight on disability

and representation. “I’m really happy to be able to be part of that,” he adds.

Will and his dance partner Janette Manrara are taking the dancefloor by storm – even leaving judge Motsi Mabuse in tears after their contemporary performance in week five.

Will with his gold medal in Rio

THE TANGO

Dedicating the dance to doctors, nurses and patients at Great Ormond Street Hospital: Will is showing the general public that it is possible to overcome barriers and challenges that can be thrown at you. For Will and Janette, determination, practice and adapting dances has seen the Paralympian flourish on the dancefloor.

Will continues: “It’s extremely challenging, but Janette is brilliant at

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interview

It’s really important to show what people can do, and to see them on television so people can push themselves pushing me, and understanding me, and she knows what will work for us. One of the things we had to do was use my knees more, to compensate for having no ankles to try and create the rise and fall that one of our dances, the foxtrot, needed.”

Through discovering what works best for them and making adjustments, Will is changing perceptions of disability and enjoying every pirouette.

“Everyone should try it,” enthuses Will. “I never thought I would enjoy it so much, and it’s also really positive and therapeutic. You don’t know what you can do until you try.”

Going from one stage to another, alongside preparing for weekly dances and performances, Will is gearing up to represent Great Britain at the upcoming Tokyo Summer Paralympic Games in 2020.

PICS: © BBC; ONEDITION

TOKYO 2020

“I’ve had my best ever season this year, winning gold in Italy, Slovenia and Japan, and I am really looking forward to Tokyo next year,” continues Will excitedly. “I think the training I am doing for Strictly is going to help my table tennis as it is improving my balance and movement and strengthening my core.

“Once I finish Strictly I will be fully focused on Tokyo and it would mean the world to me to successfully defend my Paralympic title next year.”

Will, and an estimated 4,400 Paralympians from across the world, are preparing for the Summer Paralympics set to start on Tuesday 25 August 2020.

The road to Tokyo and the Paralympics can be gruelling with intense training and hardship, however, it is another opportunity for Will – and many others – to shine a light on the abilities that the disabled community have. Not to mention a plethora of new or adapted

Performing on Strictly

sports that people at home can get involved with.

Will adds: “It’s really important to show what people can do, and to see them on television so people can push themselves. When I was growing up I never saw anyone like me on television and I’ve had some amazing messages from parents whose children have the same disability as me and are being inspired to try new things.

“Sport is a brilliant way to improve confidence and just to make friends and meet other people who may have the same challenges as you,” continues Will.

“Table tennis is a really inclusive sport as you can play in a wheelchair or standing; anyone can have a go and it caters for such a wide range of disabilities.”

During the upcoming Games, 22 Paralympic sports will be featured from archery, judo, swimming and, of course, table tennis, which has been part of the Paralympic programme since the first

Paralympic Games held in Rome, 1960.

With more scope for physical activity in 2019 and into 2020 for the disabled community, events such as Strictly Come Dancing and the Paralympic Games are not only beneficial to highlight what sporting opportunities are available for disabled people, but to showcase disability to a wider audience.

During rehearsal for week six Will was injured and it is unsure if he will continue on the show; whatever the outcome, Will is making big leaps for representation of disability and accessibility on stages worldwide.

Watch Strictly Come Dancing on BBC One every weekend. The final will take place on Saturday 14 December 2019.

FOR MORE INFORMATION

Learn more about the Tokyo Summer Paralympic Games (tokyo2020.org) and how to get involved with table tennis (www.britishparatabletennis.com).

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enable care

The power of

Community in care Carers Rights Day is an annual event to make carers aware of their rights, where to get guidance, and to raise awareness of carers’ needs. We speak to one carer about finding support from other parents and this year’s focus: helping carers find their way in local communities

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n 21 November charities, support services and organisations will come together to celebrate Carers Rights Day. Every day 6,000 people in the UK become carers, often without the time to plan or seek support and advice.

When Helen’s daughter Maya was born with a rare chromosomal disorder, she didn’t class herself as a carer straight away, she remembers: “I didn’t even know I was a carer; I was just a mum and Maya was a baby; I was someone with questions and there weren’t any answers.”

CARING

With your time committed to making sure the person you care for is happy and healthy, it can be difficult to navigate the maze of health and social services which give information.

“I think a hidden symptom of caring

is the emotional energy that you use while managing two lives, rather than up and that can be more draining than just her own. physical energy,” explains Helen. “The emotional energy you put into ensuring COMMUNITY that somebody else has a great day, Before Helen learnt about carers’ rights fighting their corner all of the or even classed herself as a carer, time can be emotionally she turned to her community draining and have serious for support, she explains: effects on mental health.”

“We were lucky to have an Carers Rights Carers Rights Day helps NSPCC family centre not Day 2019 takes to ensure that carers far from us and they were place on who spend their time brilliant, I went along there 21 November helping someone else are to one of the mother and supported themselves. baby sessions and it was “It’s a good thing to raise great. awareness of carers rights, “It was a bit of an awakening, saying ‘you’re a carer, here’s your but it was all down to the staff at the rights, have a look at them,’ it’s a simple centre, they were fantastic.” starting point because a lot of carers Speaking to other parents of disabled are suddenly thrown into caring – that children reassured Helen that she can be a huge life shift to suddenly find was not alone and that there was yourself in that situation.” support available. This camaraderie Maya is now 21 and Helen has learnt was essential to Helen identifying as a about her rights as a carer over time carer and realising she was entitled to

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KNOWLEDGE

Community services and professionals are often essential to exercising your rights as a carer, but this can only be done when you arm yourself with the correct knowledge. With a wealth of information to take in, this can be overwhelming.

“Even now I would say I can’t possibly know everything there is to know,” admits Helen. “I’m still learning; and I’m still learning about my daughter, you just pick it up as you go along when you’re open to it.”

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“

Knowledge is power and it does give you confidence

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support.

“You walk into a room with other mums and dads and siblings of disabled children and suddenly it’s like: ‘wow where have these people been all this time?’” questions Helen. “I realised I’m not alone, there are other people out there – of course there are.”

This sense of community often extends to health and social services who can be your ally.

“When they’re happy to fill out a form for you or write a letter on your behalf it’s reassuring because suddenly you feel like ‘oh, ok I’ve got someone who knows what they’re doing fighting my corner with me’,” emphasises Helen.

Although it can take time to learn about your rights, it is worth it when you do. For Helen, learning about her rights as a carer meant a boost in confidence when she has had to fight for what her daughter is entitled to.

“Knowledge is power and it does give you confidence to go into a situation knowing that you have the information and you have done the research, that’s always helpful,” says Helen.

AWARENESS

The fight to exercise carers rights, and awareness days like Carers Rights Day, wouldn’t be necessary if their rights were common knowledge that everyone was equipped with. Helen believes this also contributes to a stigma around being a carer.

“For me Carers Rights Day is about standing up and saying I’m a carer

and we deserve to be treated better,” stresses Helen. “Not by the person next door or the neighbour over the road, but actually by a lot of professionals and by the benefits system.

“Information and communication of that information is definitely a problem.”

Now, with 21 years of experience and knowledge, Helen has learnt that friends and family who have disabled children themselves often have the answers, but if they don’t you should never shy away from seeking answers.

“Ask questions, if you’ve got a question don’t be afraid to ask it,” recommends Helen. “If you get a blank face that’s fine, ask someone else, read magazines, read articles online, go to Citizens Advice.”

Becoming a carer can be life changing, especially if it is without warning or prior experience. Seeking support from your community and learning about what you are entitled to on Carers Rights Day could make daily life a little easier.

FOR MORE INFORMATION

Each year Carers UK runs the Carers Rights Day campaign. For more information visit www.carersuk.org

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TALKING ABOUT THE

POWER 100 Across the UK there are disability influencers paving the way for a more inclusive society. With the announcement of this year’s Shaw Trust Disability Power 100, one member of the list reveals why it’s so beneficial for the disabled community

K

im Tserkezie is a prominent figure in the film and television industry and the disabled community.

Throughout Kim’s career, the actress, writer, producer and disability activist has worked to challenge perceptions of disability in the wider mainstream media.

This dedication to change attitudes saw Kim named as a member of the Shaw Trust Power 100. “To be in the company of so many incredible disabled people who are doing tremendous work, I was really shocked,” enthuses Kim.

ON TOP

The Shaw Trust Power 100 is an annual publication detailing information on the 100 most influential disabled people in the UK. It is an integral list in challenging attitudes towards disability, raising awareness, and continuing the discussions on disability inclusion.

“It is great that the Power list exists as a resource for young disabled people,” continues Kim. Showing disabled people working and achieving in various fields may influence them to follow their own dreams and ambitions.”

As Penny in Balamory

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INCLUDED

And, for Kim, encouraging disabled people has been a driving force behind her 25-year long career. From her first big break as a presenter for BBC’s Disability Today and From the Edge, to appearing in the BAFTA award winning, Balamory, Kim – who has spinal muscular atrophy – has fought for media inclusion.

Kim emphasises: “In my own personal life, since a child, I’ve had to explain and find ways on how to participate and have the same rights as my non-disabled peers. Working in entertainment, it was obvious for me to challenge the industry, too.”

“This is something I naturally do, but I also want to do it to continue pushing boundaries for disabled people. It is my responsibility to do it. I don’t want the next generation to have the same struggles as I’ve had.”

Kim Tserkezie

I don’t want the next generation to have the same struggles as I’ve had

FORWARD

Alongside being featured on the Shaw Trust Power 100 list, running her own production company, Scattered Pictures (www.scatteredpictures.net) which promotes diverse and emerging talent, Kim is currently playing the lead role in Obsession – a BFI funded short film – which wasn’t initially a disabled character.

“By putting me in that role, they have added another layer to the story and a fresh way of telling the story,” says Kim. “It is an area that explores domestic abuse and I have never seen disabled women in that narrative or on screen before.”

Kim is making waves in her career and in campaigning and beyond to ensure all disabled people experience the same representation. Kim adds: “Audiences are ready to see disabled people; and what’s more disabled people are audiences too. Commissioners are key –

During filming

they can and need to be more inclusive in their choices.”

Everyone on the Shaw Trust’s Power 100 is working to take attitudes and opinions on disability forward; and Kim Tserkezie is one driving force behind representation of disability in the media.

FOR MORE INFORMATION

Take a look at the full Shaw Trust Power 100 by visiting, disabilitypower100.com or The Shaw Trust (www.shaw-trust.org.uk).

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28/10/2019 10:39

It’s not about the cards you’re dealt, it’s how you play them.

BP is proud to help advance the Paralympic Movement for over 10 years.

Tatyana McFadden Wheelchair racer United States

keep advancing

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24/10/2019 16:39

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THIS IDPWD Across the world, one billion people – or 15 per cent of the worldwide population – live with a disability. Each year, International Day of Persons with Disabilities works to raise awareness and celebrate disability; and 2019 is no different

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spotlight

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or nearly 30 years, International Day of Persons with Disabilities (IDPWD) has had a goal to highlight the people around the globe living with a sensory, learning, physical disability or mental health condition and their carers or professionals working alongside the disabled community.

Initially launched in 1992 by the United Nations General Assembly, IDPWD is working to empower the disabled community and pioneering in obtaining inclusiveness and equality in all corners of the world.

Now, in 2019 on 3 December – the annual day for IDPWD – many countries are looking at how they can ensure their policies and way of life is inclusive. This year’s theme is set to highlight how the future is accessible for disabled people.

*ALL FACTS AND FIGURES OBTAINED FROM THE UNITED NATIONS DEPARTMENT OF ECONOMIC AND SOCIAL AFFAIRS

VIEW

“From a governmental viewpoint there are many countries which are committing nationwide policy approaches aimed at improving the lives of people with disability, their family and carers,” enthuses managing director of IDPWD, Wade Lange.

“Many reforms focus on better inclusion for people with disability and seek to create a society that enables people with disability to fulfil their potential as equal citizens. From an individual level there are numerous amazing achievements from businesses, schools, universities, actors, singers, TV personalities, sports people and advocates that continue to be champions for people with disability.”

And, IDPWD is an important initiative working to change perceptions of disability, raise awareness, whilst working towards a more inclusive and accessible world for everyone. As much as there have been significant steps forward, change is still necessary.

Participation makes the message permeate wider and deeper into people’s psyche issue which is part obvious and part oblivious in people’s mind set. More must be done to design action plans and polices which remove barriers such as physical, communication and attitudinal that hamper individual’s ability to have full participation in society.

“Inclusion is multi–layered and must include fair treatment, universal design, adequate healthcare, accommodation, education, support services and education to name a few.”

Throughout 2019 countries across the world have been adapting and changing to become more accessible for the disabled community and their loved ones. IDPWD is targeted at empowering disabled people to come forward to have their voices heard in a bid to promote worldwide understanding of what life with a disability is like.

With one fifth of people worldwide living with a disability, adapting and progression is essential. And it doesn’t stop with government policies and people working directly with disabled people, everyone has the opportunity to make some changes this IDPWD.

INVOLVED

“Get involved,” enthuses Wade.

“Participation makes the message permeate wider and deeper into people’s psyche. Further, [people can] take the time to reflect on their local environment and see how they can make it a better place, which is ultimately more inclusive.”

CHANGE As an important event within the It is no secret that the disabled disabled calendar, more can always be community can face disadvantages done to achieve full equality. In a bid to and continued discrimination here in continue transforming the world for the the UK and further afield. By starting better, the United Nations has released the conversation around their sustainable development disability and what people goals on how the world can be can do, not what they can’t, HAVE more inclusive by 2030. Within YOUR awareness of disability the report, it states clearly that SAY and accessibility will be disability cannot be a reason What are you heightened. or criteria for lack of access doing on IDPWD? Wade continues: to development programmes Let us know “Inclusion is an on-going @EnableMagazine worldwide: emphasising the

need for accessibility in all countries big or small.

Similarly, the New Urban Agenda – also published through the United Nations – has committed to continually promoting measures to facilitate equal access within public spaces.

This IDPWD, you can go into your community to help encourage change.

“Governments are vital in designing and developing policy change, but communities are necessary in enacting them,” continues Wade. “There are one billion people in the world who have some form of disability and these figures indicate it’s a global significance, which must be reflected on like any other significant day of celebration.”

By getting involved with IDPWD you can make a step forward for a more accessible future, after all, you know your local community better than anyone else. From sending a letter to the local council to request improved access in the town centre to participating in fundraising events or answering questions related to your disability: simple discussions are the pathway to change.

Yes, there is a long way to go before complete inclusion is facilitated, but with days such as IDPWD and your voice more can be done to enhance the importance of a more inclusive world for everyone to inhabit, regardless of ability.

IDPWD is a day to celebrate, feel empowered and work towards a better future for all disabled people.

THE FACTS AND FIGURES In the UK, more than 3.7 MILLION disabled people are in work* An estimated 386 MILLION of the world’s working-age people have a form of disability Worldwide, there are 220 MILLION young people living with a disability aged 15–24 VISUAL AND HEARING disabilities are the most prominent across the world 80% of people with disabilities live in developing countries

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28/10/2019 10:42

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21/01/2019 12:06:30 24/10/2019 16:39

enable life

CHALLENGING bullying attitudes Disabled children are three times more likely to experience bullying compared with their non-disabled peers. Experts reveal exactly why, and what must be done to change attitudes towards disability, to prevent all forms of bullying

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very year, Anti-Bullying Week is celebrated in November, to combat attitudes that lead to bullying. This year, the theme is Change Starts with Us, acknowledging that we all have an individual responsibility to make changes that create a safe, inclusive environment for everyone.

IMPACT

Bullying is something that can affect physical health, self-esteem, socialising, attainment, and can significantly impact mental health. Everyone can experience bullying; however, the disabled community is more likely to experience bullying compared to their non-disabled peers. No more so than children and young people living with a disability.

Disabled children are at a higher programmes at the charity, Antirisk of experiencing bullying; there Bullying Alliance. “This perceived are many reasons for this, but it difference might be to do with their is primarily caused by a lack of individual characteristics, or their understanding surrounding disability, relationships with peers and the wider and the prevailing attitude that community.” it’s acceptable to pick on Nicola continues: “For a someone’s differences. disabled child, they might Anti-Bullying In fact, research has be singled out because found that at aged just of the effects of an Week will take seven, 12 per cent of impairment. For example, place from 11 – 15 children with special needs it might take them longer November 2019 revealed they were bullied to go from class to class; ‘all of the time’ by other they might be absent from pupils, compared to just six per school a lot, or there might be cent of their non-disabled peers. communication barriers. If there “Generally, when any child is being isn’t a culture in the school to support bullied, it is because someone has all children to understand or see singled them out as being different,” beyond these differences, this can lead explains Nicola Murray, head of to attitudinal issues and stigma.”

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enable life

Addressing attitudes is crucial in reducing the stigma surrounding disability, but physical barriers within schools – and wider society – can pose as a hurdle to changing mindsets, and the education system has a huge part to play in making improvements.

“The way schools are set up, SEN pupils are often isolated from their peer group,” Nicola explains. “Disabled children might have a learning support assistant, they might be taught in a different part of the class or building, there might be a lack of quality access to the physical environment, the curriculum, or social opportunities.

“Sometimes, a SEN child might not be given independence, and aren’t enabled to be a part of the same activities their peers are.”

During Anti-Bullying Week, schools, workplaces and the wider community are urged to work together to challenge bullying when we see it, particularly when it’s directed towards someone who doesn’t feel safe defending themselves.

SENSORY

For people living with sensory disabilities, it can be particularly difficult to understand and express the fact that

“We have to show that sort of behaviour isn’t tolerated

“

BARRIERS

they’re being bullied.

“Deaf children can experience bullying for a variety of reasons,” explains Andrew Richardson, safeguarding manager at the National Deaf Children’s Society (NDCS). From a lack of deaf awareness, or negative attitudes towards children and young people with a disability: this can have a detrimental impact on a person’s progression.

And, as bullying comes in many different forms from verbal, emotional, physical and cyberbullying, people with sensory disabilities may not easily recognise bullying behaviour.

“Deaf children are sometimes less able to pick up on social cues, such as sarcasm or a tone of voice, and can be less able to verbally defend themselves,” continues Andrew. “There’s no excuse for bullying and it’s important that any

instances are quickly identified and stopped.”

IDENTIFY

For various different reasons, disabled people may find it harder to verbalise being bullied. However, as a parent or carer, there are signs present.

“Some clues can include difficulty sleeping, becoming withdrawn or a reluctance to go somewhere,” Andrew explains. “Their behaviour may change at home, or they may want to distance themselves from ‘signs of deafness’, such as not wearing their hearing technology.”

As a parent, it can be extremely distressing to think about your child being bullied, particularly if it’s targeted towards their disability. But, there are things you can do to address the issue and ensure your child knows they can come to you for support.

“No bullying situation is the same and sometimes it’s difficult to know exactly what to do,” Andrew says. “But acting immediately, consulting resources and alerting attention is absolutely vital for the child’s health and wellbeing.”

TRUST

When a child or young person tells a trusted adult they’re being bullied, it’s vital that action is taken immediately to help them.

“Young disabled people tell us that if they tell someone and nothing happens, that can be almost as damaging as the bullying itself,” Nicola stresses. “We have to show that sort of behaviour isn’t tolerated. All the child can do is tell someone, but it’s the responsibility of those trusted people to act.”

Bullying is something that can happen to anyone at any time in their life, and is a problem that particularly affects the disabled community.

It’s important to remember that, if you’re experiencing bullying – be that at school, in the workplace or in your personal life – it’s not your fault, and it’s not your disability’s fault, either.

Unfortunately, bullying is an issue that affects disabled people all year round, but with campaigns such as Anti-Bullying Week spotlighting the issue, we’re a step closer to changing attitudes.

FOR MORE INFORMATION

Support can be found from Anti-Bullying Alliance (www.anti-bullyingalliance.org.uk) and National Deaf Children’s Society (www.ndcs.org.uk).

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28/10/2019 11:36

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24/10/2019 16:40

FRIENDS OF ENABLE

2019 Reflections a With a New Year comes new opportunities to set goals. We catch up with some of our 2019 interviewees

LUCY ALEXANDER

TV presenter [In 2020] I want to renovate my Whitstable beach house and get it ready and accessible by the summer so we can enjoy more family time. My parents, Kitty’s grandparents, are there and our plan for 2020 is to spend more quality family time together making memories. I want to travel more and say YES to everything.

In my career, I just had a brandnew series of my BBC1 show The Customer is Always Right recommissioned after the first series aired this summer. I’m so excited about that and I’m also hoping Kitty and I will be doing some TV work together in the future.

JUSTIN TOMLINSON Minister for Disabled People

This year we’ve put disability right at the heart of government with a new unit in the Cabinet Office, enhancing our power to tackle the issues facing disabled people across every area of their lives. In 2020 I want to continue removing barriers to work for disabled people and make the process for claiming financial support as helpful and quick as possible.

KITTY CASTLEDINE

Former Enable cover star I’m so proud to have passed my driving test [in 2019] and I can now drive around everywhere, giving me so much more freedom this year. I have my A levels in 2020 so I’m hoping to pass with good grades and audition for drama school. It’s my dream to get into one of the top accredited schools, because I want to act.

I also want to have lots of fun – generally enjoy life. I must try to not to be stressed, stay relaxed, calm and not procrastinate – that’s my downfall. I also want to keep up all of my swimming and fitness to stay in good shape.

ELLIE SIMPSON Athlete

My biggest achievement in 2019 was being selected to represent Great Britain at the 2019 WPA World Championships in Dubai.

In 2020 my goals are to grow my charity, CP Teens UK, to reach more people and to provide more activities. I am also hoping to compete at the 2020 RaceRunning Championships in Copenhagen.

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28/10/2019 10:51

to

enable

spotlight

s and Resolutions to find out their highlights from the last year and what they are looking forward to as we enter 2020

SARAH GORDY Actress

MARK ORMROD

PICS: ©JENNIE SCOTT PHOTOGRAPHY; GETTY IMAGES / INVICTUS GAMES SYDNEY 2018; SNOOTY FOX IMAGES; ITV PLC

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Veteran and motivational speaker as an investor, have my So far this year I have second book released received my Blue Belt in and start writing my third Jiu Jitsu and started my which will be a children’s second book. I have also book. I want to launch an had my documentary online membership site released on Amazon Prime for coaching, compete in and grew three of my small some form of sporting businesses. competition and take my In 2020 I am aiming to entire family on holiday. launch another business

JAMES MOORE Actor

My 2019 achievement was winning the NTA. My goals for the future are to build on my career and my following whilst also spreading awareness of disability and the importance of disability being represented in media.

The highlight of the year for me was Jellyfish at The National Theatre. I have always dreamed of performing there, but didn’t expect to play a lead role. Ben Weatheril’s writing is the real star of the show and it was such an honour to work with director Tim Hoare, actors Penny Leydon, Nicky Priest, Sion Daniel Young. I was nominated by The Stage for the Joe Allen Best West End Debut, I didn’t get it but it was a great party and an honour.

I was also surprised and delighted to be named in The Elle List 2019 – 50 Game Changers.

My latest adventure is joining the cast of The A Word in series three. Peter Bowker is another great writer who is very involved in the making of the series. I love this programme, it is so warm and different and everybody is helpful and friendly. Watch out for some amazing fashion in episode five, lucky me.

KARE ADENEGAN

Paralympian 2019 has been a busy year with my A-Level exams and preparation for the World Championships. I am excited for 2020 with the prospect of being selected for my second Paralympic Games in Tokyo.

Read more resolutions online at www.enablemagazine.co.uk enablemagazine.co.uk

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enable life

JUST ASK,

Don’t Grab

The outside world can present barriers for disabled people: one such barrier is having help forced upon you from nondisabled people. One woman is trying to combat this, encouraging well-meaning members of the public to Just Ask, Don’t Grab

I

n 2018, Dr. Amy Kavanagh – who is visually impaired – began tweeting about her experiences as a new white cane user out in public, after people began grabbing her, thinking they were being helpful.

CAMPAIGN

Creating the hashtag, #JustAskDontGrab, as a place for other disabled people to share their experiences, Amy’s campaign resonated with many people within the online disabled community who could relate to her experiences.

“I loved the new independence and confidence my white cane gave me, but as soon as I started using it I experienced people touching me without my consent,” Amy explains. “I started tweeting about it to share the incidents and many other visually impaired and disabled people said they had similar experiences.

“The hashtag is a clear message to guide non-disabled people about how to offer assistance, and a mechanism for disabled people to share their experiences of unwanted touching and

Independence is so important to me and many other disabled people

positive acts of support.”

Amy has been grabbed and pushed, pulled into train carriages and moving traffic, steered around shops and stopped on pavements to ask if she’s lost or needs help: situations that not only make her feel understandably unsafe and intimidated, but directly put her in danger, too.

INDEPENDENCE

“As a visually impaired person my mobility and independence are really important to me, so to constantly have people taking away my autonomy and making decisions for me without my consent is so humiliating,” says Amy. “The worst part is the abuse if I challenge someone about their actions. Even a polite, firm request to stop touching me can be met with real aggression or hostility.”

Amy’s experiences in public are not unique, with her stories resonating with disabled people across the country and around the world.

“It’s been incredible to see people using the hashtag and sharing their own experiences, good and bad,” Amy enthuses. “So many people have contacted me online saying how pleased they are that someone is talking about

the issue and that they also thought they were the only person that had these experiences.”

PERCEPTIONS

The campaign has raised awareness of acceptable approaches to help, with non-disabled people also using the hashtag to demonstrate what they’ve learned through the campaign.

“I hope the campaign changes perceptions about disabled people being incapable and constantly in need of interventions and support,” Amy says. “One of the strongest messages I try to get across is that although polite respectful offers of help are welcome, I don’t always need help. Independence is so important to me and many other disabled people.

“I hope it challenges the stereotype of the ‘helpless’ vulnerable disabled person and reminds people that we have the same right to consent, boundaries and autonomy as everyone else.”

FOR MORE INFORMATION

To read others’ stories, or reach out for solidarity, you can visit the hashtag #JustAskDontGrab on Twitter

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28/10/2019 16:35

enable voices

Tim Rushby-Smith

The inspiration game Preparations for the Tokyo 2020 Summer Paralympic Games are well under way, and our columnist Tim Rushby-Smith is feeling inspired to take his hobby of wheelchair basketball to new heights

T

he gradual increase in platitudes and memes seems to begin earlier and earlier, but the message hasn’t really changed: ‘The only disability is a bad attitude’, ‘What’s your excuse?’ and so on.

This is supposed to motivate the non-disabled community to do what exactly? Moan less? Take up a sport?

Have a limb amputated? I know it’s early to raise this subject, but as a recent victim of inspiration, I feel the subject needs airing.

SPORT

ADMIRATION

I’m inspired by how welcoming they are. I’m inspired by their awful, black humour. The ease with which everyday misfortune becomes a hilarious anecdote. I’m inspired by the easy familiarity of so much travel, mostly by air (Australia’s a big place).

I’m inspired by their constant promotion of the message of sport for all.

And most of all, I’m inspired when young kids with disabilities watch us play, and I can see their eyes light up.

BELONG

Not everyone is going to be able to fully participate in sport at any level, but the inspiration that disability sport offers to disabled people comes from creating a world where we belong.

Yes, we belong in the rest of the world, and that should always be the expectation. But sometimes, especially for kids, it’s nice to be in a place where they aren’t the odd one out. I’ve enjoyed that feeling before, but now the arena is bigger, so we get to reach more people.

Everyone should take the opportunity to be a rookie at something, whatever age you may be. You never know where it may take you, or the friends you may make along the way.

“

I’m inspired when young kids with disabilities watch us play, and I can see their eyes light up

“

This year I found myself in the unusual position of being a 51-year-old rookie.

Having played wheelchair basketball enthusiastically for a number of years, I was handed the opportunity to step up to the Wollongong Roller Hawks first team, playing in the National League over here in Australia (my rookie status is conferred by my being new to this level of the sport).

So now I’m surrounded by Paralympians old and new, and “If I work hard, maybe one day I can get to that level” is a thought that never crosses my mind. These people are single-minded in purpose, and committed to a level of fitness that is impossible to achieve at 51, unless you give up everything, even being awake outside of training times.

But here’s the thing: I’m inspired.

Beyond The Break, by Darren Longbottom and Tim Rushby-Smith is published by Ebury Press in Australia and is available internationally as an eBook

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28/10/2019 10:52

Facing the frontier of

MS treatment

Each year 5,000 people are diagnosed with multiple sclerosis (MS), and while there are disease modifying therapies, there is no cure. Stem cell therapies are highly effective at reducing the inflammation in MS patients, but the treatments are still largely experimental

S

tem cell therapies are commonly used when treating conditions like leukaemia, but the method can also be used in the treatment of MS. In the initial trailing stage, the most studied type of stem cell therapy for MS is autologous haematopoietic stem cell transplantation, or AHSCT. The treatment is often portrayed as a cure for MS, a misconception that could spread false hope for patients. Making accurate information available for MS patients is a priority for medical professionals like Dr Ben Turner, a neurologist based at Barts Health NHS Trust and a MS specialist.

Dr Turner is part of a team which has treated over 120 patients with AHSCT. “Drugs are highly effective but do not work for every one and are by no means a cure,” explains Dr Turner.

“Unfortunately, some people are still worsening despite high efficacy drugs so we have been looking to other methods of containing the MS condition.”

TREATMENT

AHSCT cannot repair damage which has already been done by MS, but it can hopefully slow down further damage to myelin – the protective

layer around nerves in the spinal cord and brain.

The underlying principle behind stem cell treatments for MS is to slow the effects of the condition by refuting an attack. Essentially, AHSCT is a way of rebooting the immune system, but there is the potential that symptoms of MS would return.

Rebooting the immune system is key to slowing the symptoms of MS, which causes the immune system to attack the myelin, but in order to reboot this, it first has to be destroyed.

Initially stem cells are harvested by drawing blood. High concentrations of chemotherapy drugs are then used to fully wipe out the immune system, leaving patients open to infection.

The stem cells are reintroduced into the blood, helping the body to speed up the process of rebuilding the immune system. Once treatment is done it is hoped that the immune system no longer attacks other parts of the body.

RISKS

Although AHSCT is a one-off treatment, the recovery process can be challenging. The treatment itself takes several weeks, but recovery can take much longer, even over a year for some people. It is important for each individual to understand the negatives

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enable health

nurse or neurologist for over a year. and ensure the benefits and risks are Just 12 per cent of this group were balanced for them before starting taking a disease modifying therapy treatment. which could slow the progression of The risks of the treatment include MS. hair loss and fertility issues, but due Both centres consider applications to the chance of infection after the on an individual basis, mainly immune system is destroyed there is accepting patients who have had a small possibility of mortality. This continuous relapses in their MS with has to be balanced against other no relief from high efficacy drugs. treatments for MS, which have no “The big question patients chance of mortality but are ask is why can’t they have life-long. the therapy at the start’,” “That’s one of the Actress Selma Dr Turner says. “It’s main barriers to stem Blair is currently because there’s a two cell transplantation,” undergoing stem per cent mortality risk, emphasises Dr you are putting young Turner. “People are cell treatment people at great risk young and don’t to combat her and if something were have a terminal symptoms of to happen, we would disease, their lives MS have to ask if that was the aren’t shortened, right decision.” so exposing them to a Before seeking referral to one treatment that could kill them of the two centres providing AHSCT is a huge step.” on the NHS, it is important to consult your MS team.

ELIGIBILITY The high risks that come with AHSCT mean that it is not yet widely available – the treatment is provided by the NHS in just two centres in the UK, one which Dr Turner practices in.

“Other treatments are very effective for most people and the stem cell treatment is for people who took those drugs and they haven’t worked,” explains Dr Turner. “I think there is a wider issue about access to MS treatments: large numbers of patients have never been offered anything at all; it’s a tragic situation because their disease could have been treated.”

According to research by the MS Society, in 2016 one in ten people with relapsing MS hadn’t seen an MS

“

We have been looking to other methods of containing the MS condition

“

RESEARCH

Without more research on the long-term benefits of AHSCT the treatment will remain a last resort for patients whose MS does not respond to high efficacy drugs, Dr Turner says: “Most doctors wouldn’t recommend stem cell therapy because there’s not been a study to say ‘yes, it’s better than those drugs’ and the other main reason of course is because it is a high-risk procedure.”

A study to this effect is now underway. The new Star-MS Trial hopes to bring answers on whether the treatment is more effective than the drugs currently prescribed to MS patients.

Until there are answers, stem cell transplantation for MS will be considered widely experimental and only available to small numbers of people. More research is key to reaching answers and being a step closer towards finding further treatments for MS.

FOR MORE INFORMATION The MS Society provide information to enable people to research stem cell therapies for MS. Visit www.mssociety.org.uk to find out more.

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10/10/2019 16:41 11:42 24/10/2019

enable finance

BEYOND

Purple Tuesday Across the country the high-street is a buzz with shoppers. However, the disabled community are distinctly lacking representation within stores.

Purple Tuesday is changing the face of disabled shopping, founder Mike Adams OBE reveals why

“

I

t is giving disabled people the confidence to get outside,” enthuses Mike Adams OBE, about the international reach of Purple Tuesday.

On high streets and within businesses, accessibility may not be entirely what it needs to be. Purple Tuesday is a driving force behind the disabled community as the initiative looks to change the consumer experience for the disabled community.

PURPLE POUND

The combined consumer spending power of disabled people and their families is worth £249 billion, and rising – known as the Purple Pound – and from an economical perspective, businesses are missing out on a significant target market.

“We know that 75 per cent of disabled people and their families have walked out of businesses due to poor access or

The most important aspect of consumer facing businesses is the customer experience

customer service,” explains Mike. “The most important aspect of consumer facing businesses is the customer experience.”

Purple Tuesday – set to take place on 12 November 2019 – was an initial success when it was launched in 2018.

Now in its sophomore year, Purple Tuesday is going beyond the high street for greater reach.

with customers is imperative. This year sees participation from both large and small companies looking to move forward. However, Purple Tuesday is more than just one day.

ONGOING

Mike emphasises: “Purple Tuesday is not about one day. We don’t want changes to take place on just one day, Purple Tuesday is about what businesses can do 365 days a year.”

ALL DISABILITIES From changing signage on “When we started, most people accessible toilets to highlight thought Purple Tuesday was hidden disabilities or getting about supporting wheelchair members of staff to learn users and blind and deaf Purple Tuesday hello and goodbye in British people. When we talked takes place on Sign Language, to getting an about how four out of five 12 November audit of a website to make it disabled people had a hidden 2019 more accessible: small amends impairment it realigned how can make a difference. people thought about disability And, for Mike, he believes if – that was incredibly important,” more companies make adaptations for emphasises Mike. “Purple Tuesday’s disabled consumers it’s only a matter main beneficiaries are disabled people of time before there is a ripple effect because they get a better customer of change. He concludes: “If companies experience. start selling to disabled consumers then “50 per cent of people in the UK will there will be a momentum, I believe, either have a relative who is disabled for those companies wanting to hire or someone in their close network,” disabled people to reflect their customer continues Mike. “What really resonated base.” with staff and businesses is: would they want their disabled relative or someone in their close network to come into the FOR MORE INFORMATION business for which they worked and get Discover how you can get involved with Purple worse customer experience because Tuesday or learn which organisations are getting they had a disability?” involved by visiting, purpletuesday.org.uk As a business, building relationships

Read our full interview with Mike Adams OBE on the website, www.enablemagazine.co.uk enablemagazine.co.uk

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SAVVY SHOPPING THIS CHRISTMAS The festive season can see you dipping into savings or changing your monthly budget to fit in social activities and additional spending.

We take a look at how to spend clever over Christmas

E

ach year, the average UK household spends an extra £500 in the lead up to Christmas, including disabled households. The Purple Pound, the spending power of working age people with a disability, is worth around £249 billion, but the festive season can still make a dent in your bank balance.

Through planning and finding the best deals, you can keep your spending on track over Christmas and, in turn, reduce stress which could affect symptoms of a long-term condition or disability.

SHOPPING

Accessible shopping is for all year round, not just for Christmas, but during this busier period it can be a daunting task, especially if you are visiting somewhere new to go gift shopping.

These trips don’t have to be difficult – before you set out to your local shopping centre or supermarket research what support and assistance is available. Look out for retailers that are Disability Confident, this means that they realise the potential of disabled people as both employees and customers.

If possible, check shops’ accessibility online or over the phone before you visit, or use an app like Welcome by Neatebox (www.neatebox.com) which allows you to communicate your specific accessibility requirements to staff members before you arrive.

PLANNING

For both shopping and spending over the festive season, planning is essential. Set yourself a budget for all things Christmas, from gifts to cranberry sauce, ensuring you have enough money to

cover the outgoings you are responsible for each month.

If you spend money on equipment, activities or therapies for yourself or someone you care for it is essential that this is considered before setting a budget. Spending within your means will see you starting a New Year without the post-Christmas blues (find out more on page 51).

DEALS

Searching for the best deals and shopping around can save you money over the festive period. There is a host of sites, like Hot UK Deals (www. hotukdeals.com), which compare offers and pricing on everything from turkeys to your friend’s favourite perfume.

Quality time spent with friends and family will always be valued more than physical gifts. While there are no specific

grants or funding to cover the cost of Christmas there are grants available for family holidays and recreation.

Family Fund (www.familyfund.org.uk) provides grants for families in the UK who are raising a disabled or seriously ill child aged 17 or under. The grants can cover days out, family breaks and technology that might usually be outside your spending bracket.

As we enter the season of giving, there are simple methods in place to ensure you leave everyone smiling around the Christmas tree without causing unnecessary stress and hassle on and off the high street.

FOR MORE INFORMATION

Find access reviews and information on shop accessibility on Euan’s Guide, www.euansguide.com

“

Look out for retailers that are Disability Confident

“

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Understanding

DIABETES

There are an estimated four million people in the UK living with diabetes, however, it’s a condition that is often misunderstood.

An expert reveals what everyone should know about diabetes

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E

very two minutes, someone in the UK is diagnosed with diabetes.

Despite this, two thirds of those living with the condition don’t fully understand their diabetes.

This misunderstanding can lead to mismanagement, causing various complications and disability.

TYPE

Diabetes is a condition that causes a person’s blood sugar to become too high. At present, there is currently no cure, however it can be managed by making lifestyle changes and taking insulin, your GP can support you in finding the best way to manage your condition to meet your needs.

There are two main types: Type 1 and Type 2. People with Type 1 are usually diagnosed as a child or teenager. It occurs when the cells in your body attack the pancreas, meaning it cannot produce any insulin, causing high blood glucose levels.

Alternatively, in cases of Type 2 diabetes, the body is unable to make enough insulin, or the insulin it does produce doesn’t work effectively.

According to Diabetes UK, 90 per cent of people with the condition have Type 2 diabetes.

In the early stages, Type 2 can be managed with a healthy diet, regular exercise and losing weight if necessary. But, the longer someone lives with Type 2, the more likely it is they’ll need to start treating it with medication.

Symptoms of diabetes can include increased toilet usage, feeling more thirsty and tired than usual, losing weight without trying to and blurred vision; though around six in 10 people have no symptoms at time of

“

Be honest with your team about how you’re feeling and where you need help

diagnosis.

The condition is treated with insulin: either via injections or a pump, and is free on prescription – if you’re based in England you will require a medical exemption certificate to claim your free prescription.

COMPLICATIONS

If not managed properly, diabetes can lead to serious complications, and in worst case scenarios, the complications can be fatal.

“Diabetes can result in devastating complications, some of which can lead to disability, or even be lifethreatening,” explains Libby Dowling, senior clinical advisor at Diabetes UK. “This is because having high blood sugars can damage your blood vessels, and affect parts of your body such as your feet and your eyes, potentially leading to blindness or amputations.

Damage to your blood vessels can also cause a heart attack and stroke.”

Hypos can occur when blood sugars are too low, and hypers when they’re too high, and happen when the levels of insulin, the food you eat and the exercise you do don’t complement each other. Symptoms include sweating, shaking, going pale, feeling hungry; or unusual thirst, headaches and tiredness.

Other complications can include eye problems, such as retinopathy, which can lead to complete sight loss. In fact, diabetes is the leading cause of preventable sight loss in the UK. Having diabetes can also put you at heightened risk of foot problems – the most severe of which can lead to amputation. According to Diabetes UK, the condition leads to 169 amputations each week.

Usually, your diabetes team will tell you if your risk of foot problems is high, which will allow you to put preventative measures in place. You should check your feet daily and contact your GP immediately if you notice any changes, such as pain, aching, a tingling sensation, swelling, or sores that don’t heal.

“Attending your diabetes health checks, and knowing how to look after yourself between appointments, is very important,” Libby stresses. “Your diabetes team will help you manage your diabetes in the best way for you, assess your risk of complications and advise you on how best to prevent or treat them. Together you can agree on

a personalised care plan.”

MENTAL HEALTH

Receiving a diabetes diagnosis can be a shock and bring a wave of different emotions as you come to terms with the impact it has on your life.

“First reactions might include disbelief, guilt, feeling overwhelmed and even anger,” Libby continues.

“Often these feelings ease after a while and diabetes becomes a part of life, but sometimes these feelings don’t go away easily and this can have an impact on many different aspects of life.”

Adjusting your lifestyle to accommodate diabetes can be an emotional process: not only do you have to make changes to your diet, but it can also impact your work, personal life and overall lifestyle.

“It’s important to know you’re not alone,” Libby emphasises. “There are lots of people out there to support you – whether that’s your family, your friends, your diabetes team, online forums or support groups.

The important thing is to talk about diabetes and how it’s making you feel.”

Mental health problems, such as stress, can affect blood glucose control and exacerbate your diabetes. So, it’s important that if you’re struggling to cope with diagnosis, or other aspects of life, that you liaise with your diabetes team, who can signpost you to the right support.

“Be honest with your team about how you’re feeling and where you need help,” Libby urges. “Don’t ignore the emotional impact of developing a complication – if you find it’s affecting you emotionally, talk to your diabetes team who will help you find out what support would best work for you.”

Early diagnosis is the key to preventing further complications, therefore it is vital that more people are aware of the signs and symptoms of the condition.

With around one million people in the UK living with undiagnosed diabetes, it’s vital that more is done to raise awareness and prevent misconceptions around diabetes.

FOR MORE INFORMATION

Further advice and information is available from Diabetes UK (www.diabetes.org.uk) or JDRF (www.jdrf.org.uk)

“

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Action against

Domestic abuse

Domestic abuse comes in many shapes and forms; however, more disabled people experience domestic abuse compared to the non-disabled community. For those in need, where can you turn for help?

F

or nearly two decades, Louise* had experienced psychological and physical abuse at the hands of her partner. Like many people in a similar situation, Louise, who is a wheelchair user, didn’t initially recognise the signs of abuse.

“A few people had pointed out that there was a problem, but I thought he was just angry and I didn’t realise it was domestic abuse because it was mainly psychological,” remembers Louise. “It had just become a way of life.”

From withholding care, food, use degrading language, financial abuse to removing mobility or sensory devices that you use for independence: domestic abuse happens in various ways.

According to a British Crime Survey, disabled women are twice as likely to experience domestic violence than nondisabled women. And, unfortunately, disabled women are likely to experience abuse over a longer period of time.

don’t know if that frustrated him.

“He would do these things like – I really needed a mobility scooter – and he would make excuses as to why I didn’t need one. This is blocking your freedom, that would have given me wider access to friends, instead I was isolated.”

Loved ones and colleagues soon began bringing up the topic of abuse.

However, for Louise, it wasn’t until phoning the National Domestic Abuse Helpline (0808 2000 247) that the reality of her situation came home.

“I phoned the hotline to see if I actually was in a domestic abuse situation, because I still didn’t think I was,” recalls Louise. “They told me I was; and at this point I was just getting desperate and I knew I was going to have a nervous breakdown if I couldn’t get out, and I could see what it was doing to my child.”

The day Louise called the hotline was the day Louise and her child’s life turned around.

BLOCKED

REFUGE

For Louise, after years of psychological abuse and gaslighting (the term used in reference to manipulating a person into doubting their own memory and sanity), as her condition progressed she began to experience physical abuse.

Louise continues: “Physically, I was being tipped out of my wheelchair and being bashed into people, that was as far as the physical abuse went. That all came later as I got more disabled over the past ten years in the relationship, I

One of the most daunting prospects and situations to be in, it can be hard to reach out and ask for support – especially if you’re living with a disability. But, there is a wealth of guidance available and people who want, and can, help during a situation around domestic abuse.

Louise agrees: “It is a scary move and it’s hard to leave any relationship like that, but if you’re disabled it’s even scarier because you worry about how

you’ll cope; but there is help out there.”

Taken to a refuge where she lived in a self-contained, accessible flat with her child for two years, Louise was assisted out of the cycle of abuse.

Refuge, a charity committed to creating a world where domestic violence and violence against women and girls is not tolerated, were on hand to guide Louise through her transition.

Providing Louise and her child with counselling; assertiveness training; signposting to funding to get a mobility scooter; guidance with housing associations to get Louise and her child into their own, accessible accommodation with funding to help Louise purchase the basics for their new home: the work charities such as Refuge do is imperative in the community.

VITAL

“It’s so important that the refuges are there,” emphasises Louise. “Without

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*NAME CHANGED TO PROTECT THE IDENTIFY OF INTERVIEWEE

spotlight

that place I would have had nowhere to go, and I would have had to stay in a situation where I was getting more and more disabled and more dependent on an abusive man, who just made me feel so low and depressed; I dread to think what would have happened if I wasn’t so lucky to get that place.

“For anyone else in that situation it is so hard to leave, because you think about all the consequences that have been put there by your abuser,” continues Louise. “With that support you can get out of [this situation].”

Thanks to the help from Refuge, the dedicated people working to support women – and men – who experience domestic abuse, Louise and her child are living a new safe, secure, and independent life. She enthuses: “Life is completely different now; I’m free. Even though with my condition I don’t get much sleep and I’m in a lot of pain, and it is a really difficult situation to be in, I’m free.”

ADVICE

In a situation of abuse, it can be hard to know what you’re experiencing is abuse and know that there are other people out there to help. But, as a survivor, Louise found reading the journeys of others beneficial and encouraging to reach out and get guidance.

“That helped me realise that what I was experiencing was abuse,” adds Louise. “It was shocking and comforting at the same time to realise that, and if you phone the hotline they will talk you through it. It doesn’t matter if you think you’re being silly, they will help you with what you’re going through and signpost you.”

If you, or someone you know, is experiencing domestic abuse there are people on hand to provide support.

Now free, living independently, and outside of a damaging and destructive situation, Louise is surviving and thriving – you can, too.

I didn’t realise it was domestic abuse because it was mainly psychological

FOR MORE INFORMATION

Support is available from Refuge (www.refuge.org.uk), Women’s Aid (www.womensaid.org.uk), and on the freephone 24-hour National Domestic Violence Helpline 0808 2000 247.

For sign-language based services designed to help D/deaf women and children can be contacted on 07970 350366.

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NOVEMBER 14 NOVEMBER KIDZ TO ADULTZ NORTH

EventCity, Manchester www.kidzexhibitions.co.uk Kidz to Adultz is one of the UK’s largest free exhibitions for children and young people up to 25-years-old, their families, carers and professionals who support them. The events host more than 180 exhibitors, who offer advice on a wide range of issues, such as financial help, mobility, education, sports, access, travel and more. There will also be CPD options for professionals and parents on the day.

Register for free at the website.

27–28 NOVEMBER THE OCCUPATIONAL THERAPY SHOW

NEC, Birmingham www.theotshow.com

Returning for another year is the OT show, where thousands of professionals gather to share experience and expertise in the field of occupational therapy. The free to attend event offers opportunities for CPD sessions, and exhibitions run by some of the biggest names in the industry. Head to the website to register for a place or book a stand.

4 DECEMBER MAKING SENSE OF PERSONAL INDEPENDENCE PAYMENT (PIP) WORKSHOP

Sidney West Children and Family Centre, Burgess Hill www.eventbrite.co.uk

Parents and carers are invited to attend a free workshop highlighting the key information necessary for applying for Personal Independence Payment (PIP) and additional benefits. Advice and knowledge will be shared pertinent to children and young people living with disabilities, with the workshop highlighting what will happen as your child approaches the age of 16 and changes from DLA to PIP. Registration for a spot is now open.

All the latest events happening throughout November and December

7–15 NOVEMBER THE 2019 WORLD PARA ATHLETICS CHAMPIONSHIPS

Dubai, United Arab Emirates www.paralympic.org/ dubai-2019 The Para Athletics Championships promises some exciting events from some of the biggest names is sport. From shot put and javelin, to wheelchair racing and long jump, there’s a competition that everyone will enjoy. If you’re not jetting off to Dubai to watch it in person, don’t worry, you’ll be able to catch up with all your favourite events on TV. Feeling inspired to get active? Check out your local accessible community sports teams, to get a slice of the action yourself.

PICS: © ©LUC PERCIVAL PHOTOGRAPHY

thediary

enable life

DECEMBER 3 DECEMBER INTERNATIONAL DAY OF PERSONS WITH DISABILITIES

Worldwide www.idpwd.org

Every year, International Day of Persons with Disabilities is marked to celebrate the achievements of disabled people, promote awareness of the obstacles facing the disabled community and the roles individuals, communities and governments have in eradicating these barriers. You can get involved by ordering an event pack at the website, or sharing your festivities on social media.

5 DECEMBER LEARNING FROM LEDER

Crowne Plaza, Leeds www.vodg.org.uk

National charity supporting not-for-profit organisations helping people with disabilities, VODG is hosting the conference Learning from LeDeR (The Learning Disability Mortality Review). It will focus on how the findings from the report can help prevent premature deaths in people living with a learning disability. Tickets are still available for the event with the next conference in this series scheduled for 6 February 2020 in Birmingham, looking at staying healthy with a disability.

If you have any events coming up in January and February 2020 email us at diary@enablemagazine.co.uk with the details for inclusion in next issue’s diary enablemagazine.co.uk

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CHRISTMAS

enable life

Confidence

It’s the most wonderful time of the year, but for disabled people, the rise in brightly lit markets and the flurry of Christmas shoppers can create a host of sensory and accessibility issues. Head out feeling confident this Christmas with our guide on getting ahead in the festive rush

W

ith sparkling fairy lights, the smell of cinnamon and the sound of sleigh bells all around, we’re already starting to feel festive. But, concerns about accessibility can prevent disabled people from making the most of the festive fun.

This is more than just an unfounded fear: according to Scope, 43 per cent of disabled children have been turned away from a festive activity, with 15 per cent unable to access Santa’s Grotto, or a Christmas market.

There’s no doubt that heading into the busy festive crowds can be daunting, particularly if you’re worried about the accessibility of markets, shops and restaurants. But with more venues making accessibility a priority, the list of activities disabled people can equally partake in continues to grow.

IMMERSE

Everyone deserves to enjoy the festivities and immerse themselves in the holiday cheer. Planning ahead is a great way to ensure you feel prepared and confident to hit some of the rides at your local market, or squeeze in some last-minute shopping.

Before heading out to a Christmas market, visit their website and check out all of their accessible features. Most of the websites have a dedicated section about accessibility, but if you can’t find the information you’re looking for or would like additional advice, you can always give the market a call to chat through your options.

At this point, you could also let the Christmas market know when you’re planning on visiting, so they can accommodate you in advance. Similarly,

some markets and events may provide additional support or put extra features in place, if you feel this would make your visit more enjoyable.

RESOURCES

Preparation is essential and there’s a wealth of resources on hand. Euan’s Guide (www.euansguide.com) is an invaluable website that details the accessibility of locations across the UK – it’s disabled access reviews by and for disabled people.

Scope (www.scope.org.uk) also offers information regarding accessibility at Christmas time. Their online community is a great place to share experiences of particular venues, or speak to others who can offer advice.

The Business Disability Forum (www. businessdisabilityforum.org.uk) provides a list of advice for how businesses can make their venues more inclusive, too.

These are points you can raise with business owners and event staff, if you’d like to let them know how they can improve your experience, and ensure the premises are accessible for everyone.

There’s no denying that accessibility is a year-round problem, made more pronounced at Christmas time.

However, with more events and establishments integrating accessibility as a priority into their festive plans, you can head out this holiday with confidence. No matter your plans this Christmas, we hope it’s merry and full of festive fun.

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ACCESSIBLE MARKETS

As more Christmas markets upgrade their accessible facilities, everyone can get involved in the festive merriment of mince pies, mulled wine and all things Christmas. Here are our top picks of accessible markets

Hyde Park Winter Wonderland

Hyde Park, London 21 November 2019 – 5 January 2020 www.hydeparkwinterwonderland.com Hyde Park offers complimentary tickets for personal assistants. On-site, there is a quiet area near the family entrance, which has heating, neutral lighting and no music.

Frankfurt Christmas Market

Victoria Square, Birmingham 7 November – 23 December www.thebfcm.co.uk Home to the largest German market outside of Germany and Austria, Birmingham’s market has a wheelchair and disability route, which bypasses obstacles and steps.

Various locations, Manchester 8 November – 22 December www.visitmanchester.com Lighting up the city centre of Manchester, this year’s market is free, fully accessible and assistance dogs are welcome on-site, too.

Liverpool Christmas Ice Festival

Liverpool Waterfront, Liverpool 16 November – 23 December www.visitliverpool.com Don’t miss the chance to get your skates on: the Liverpool ice rink is wheelchair accessible and you can get a free ticket for your carer or personal assistant to accompany you.

Leeds Christkindelmarkt

Millenium Square, Leeds 8 November – 21 December www.millsqleeds.com/christmasmarket Home to a traditional German market, there is ample Blue Badge parking

within the vicinity of the festivities and numerous accessible and Changing Places toilets onsite.

Bath Christmas Market

Bath City Centre 28 November – 15 December www.bathchristmasmarket.co.uk Bath Christmas Market is committed to ensuring inclusive fun. The market is fully wheelchair accessible and there are accessible toilets located nearby, on Swallow Street.

Nottingham Winter Wonderland

Old Market Square, Nottingham 15 November – 31 December www.nottinghamwinter wonderland.co.uk Whizz round the accessible ice rink, accompanied by a carer or personal assistant for free. Warm up afterwards with a mulled wine from the accessible Sur La Piste bar.

Edinburgh Christmas Market

East Princes Street Gardens, Edinburgh 16 November 2019 – 4 January 2020 www.edinburghschristmas.com Home to Scotland’s biggest Christmas market, there’s no better place to spread holiday cheer this festive season than visiting Scotland’s capital. Enjoy a ride on the iconic big wheel, in a pod that is designed to accommodate wheelchairs.

Find out more by emailing, access@ underbelly.co.uk

Cardiff Christmas Market Various locations, Cardiff 14 November – 23 December www.cardiffchristmasmarket.com If you’re heading down to the market, you can utilise the city’s Mobility Service, which can transport disabled people around the pedestrian areas of the centre. To arrange this, you can contact 0292 087 3888.

PIC: ©MARK WAUGH

Manchester Christmas Market

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SENSORY-FRIENDLY

Christmas The festive season can come with the risk of sensory overload for family members who are autistic or have conditions like ADHD. Planning and preparation can ensure that everyone has a merry Christmas

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ood planning and communication in the lead up to the festive season can bring the magic of Christmas in a way that works for everyone. Tom Purser, the head of campaigns at the National Autistic Society, says: “Christmas is an exciting and fun time of year for most people, including autistic children and adults, but it can also, at times, be confusing and overwhelming.

“Some autistic people find the sudden changes to routine and additional social pressures really hard to deal with. The bright lights and decorations, the different foods

and crowds can trigger a lot of anxiety among those with extreme sensitivities – and in some cases even cause pain.”

PLANNING

Before you start your Christmas planning, discuss and share what is important for you and the people you are spending Christmas with. This will allow you to plan in advance and prepare for all occasions.

Knowing what to expect can reduce stress for friends or family who could feel overwhelmed throughout the festive season. Understanding how you can work together to reduce this

“

Christmas... can also, at times, be confusing and overwhelming

“

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and get them ready for everything the festive season has to offer.

ROUTINE

Change could be difficult to deal with for your family member and this is exacerbated over the festive season when social events are more frequent.

Keeping to a normal daily schedule as much as possible will reduce the chances of them feeling overwhelmed.

Where possible, keep meal times the same and keep food served the same or similar, even on Christmas day.

If you are making changes to your family member’s routine and meals: take their opinions and concerns into account and see if you can adapt your plans. Changes to meals, cutlery and table set ups can all cause stress which is easily avoided or eased.

Decorating is one of the most exciting parts of the festive season, but while decorations can be great for some, they can be stressful for others.

Gradually introducing Christmas activities and decorations will help to ease this stress. Try putting up your tree one day and then adding decorations a little at a time.

QUIET SPACES

stress will help put them at ease and ensure Christmas is fun for everyone.

Planning for the whole festive season, not just Christmas day itself, will help family, friends and support services prepare as well as yourself.

Make sure you share what you are doing, who you are doing it with, where it is taking place and when with your family member.

Liaising with a school, college or support service can ensure the same approach is taken at home and in a support setting. Visual aids like calendars, lists, schedules and social stories can help prevent your family member from feeling overwhelmed

Create a designated quiet space at home where your family member can go to if they feel overwhelmed, this can be especially useful around the main days of Christmas when stress could be higher. This should be a Christmas-free area with no decorations, bright lights or noise.

Make visiting family and friends aware that this person might need some time away and give them permission to retreat to their quiet space whenever it is needed.

Before you head out over the festive season locate a place close by which will feel safe and calm for your family member, too.

Thankfully, quiet rooms are now being introduced into many shopping centres throughout the UK, a place for shoppers to escape to if they are experiencing sensory overload. These rooms already exist at the St. Enoch Centre in Glasgow and Meadowhall Shopping in Sheffield which has a quiet room and a sensory zone.

More shops and shopping centres,

including Morrisons and Asda, are introducing quiet hours: a time when shops are quieter and music and announcements are turned down. Visit your nearest shop’s website to learn what time they hold their quiet hours.

PRESENTS

Presents are a joyous part of Christmas that everyone looks forward to, but the number of presents, their wrapping and the expectation to respond can be challenging.

Agree on a number of presents that your family member would feel comfortable receiving in advance, as well as a list of presents they would like to receive. Share these preferences with family and friends so they can plan what to bring on Christmas day.

Asking your family member if they would like their gifts wrapped and if yes, how, will remove the element of surprise if this is something they find difficult.

EVENTS AND SHOPPING

If you want to go shopping, to parties or events over the festive period plan around sensory issues to reduce distress and discomfort for your family member. Think creatively about what will make these experiences enjoyable for everyone and what solutions usually work. Useful items like ear defenders can transform your shopping experience.

Where possible utilise quiet hours and quieter shopping times to shop for presents and the Christmas day feast, or try your hand at online shopping if it is difficult to leave the house. Online shopping also avoids large crowds or surprises like choirs on your local high street or a sudden surplus of Christmas lights.

If you or a family member would like to attend activities at Christmas find out how and when this would be best for your family member and what adjustments can be made to ensure everything runs as smoothly.

FOR MORE INFORMATION

Guidance on avoiding sensory overload during the festive season is available from the National Autistic Society (www.autism.org.uk).

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25/10/2019 16:50

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As the winter months draw in the pressures on money increases. From paying larger fuel bills to buying gifts for loved ones: it’s time to make sure your financially prepared to enter 2020 in the black

Financially fixed T

here are many reasons you can fall into the red over the winter months, but there is a plethora of support available to ensure your bills are paid on time and provide a full financial health check.

Regardless if you’re confident with your spending or are actively looking for support: it doesn’t hurt to ensure you’re continually in control of your finances.

Remember, you don’t have to go through hardships alone

Winter

With colder nights and darkness falling earlier there’s a high chance you’ll be spending more time with the lights and heating on throughout your home. It’s no secret that winter can make a big dent in our bank books, but there are winter specific payments and schemes available to ease the burden.

The three main schemes providing support for colder weather include: Cold Weather Payment, Warm Home Discount Scheme, and Winter Fuel payments.

Each service is available to ensure people can comfortably live through the winter months safe in the knowledge they are financially supported.

During periods of extremely cold weather – when the average temperature in your area is recorded, or forecasted to be, zero degrees Celsius or below for seven consecutive days – you will receive £25 for each seven-day period with the Cold Weather Payment.

Funding for 2019 will be available through the UK Government’s website (www.gov.uk/cold-weather-payment) from November for those eligible for the payment.

Similarly, if you are on a low income you could be eligible for the Warm Home Discount Scheme. This initiative could see you get £140 off of your electricity bill for winter 2019 to 2020. For those eligible for this scheme it doesn’t affect support from the Cold Weather Payment and Winter Fuel payments.

People born on or before 5 April 1954, the Winter Fuel payment could help you pay your gas bills with a top-up payment between £100 and £300. If you receive a state pension or another social security benefit you are eligible for the financial support over the winter months.

Make sure to visit the UK Government website to see which additional payments you could be receiving. enablemagazine.co.uk

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Benefits

Budgeting Alongside governmental guidance over winter, it is imperative that you budget effectively. “You’ve got to take control of your living costs when budgeting,” emphasises Nick Hill from the Money and Pensions Service. “You also need to be aware that you’re claiming all that you’re entitled to. If you are entitled to a certain benefit then it is important that you are receiving it.

“Similarly, think of your benefits as a form of income so you are budgeting it efficiently.” The Money Advice Service offers a free budget planner on their website to easily breakdown your spending to put

you back in control.

There’s no denying it can be easy to overlook certain monthly outgoings, or buy a gift that takes you over budget, but this can all add up in the long run. Before using the Budget Planner make sure you have as much information on your income – from employment or benefits – as possible and an idea of what your outgoings are. You can get up-to-date detailed information from your bank statements (available online or from your nearest branch), bills and receipts.

Staying on budget is an important step to avoiding falling into debt.

There are a number of benefits you can claim if you live with a disability, and if you are still working. In some cases, you may be eligible to claim Statutory Sick Pay (SSP), which will be paid by your employer; or Employment and Support Allowance (ESA), Personal Independence Payment (PIP), Universal Credit all the way to support with housing costs.

It’s important to research benefits available to ensure you are receiving the money you are rightfully entitled to.

Similarly, you may be eligible for a disability grant. After applying for the benefits you are entitled to, charities may be able to offer you a grant and the Turn2us website (www.turn2us.org.uk) provides a free grant search tool. When you find a grant that is right for you, simply reach out to the awarding bodies to start the process.

Debt

“We know that a lot of people struggle with staying in debt throughout the year, for people who are already worried about how to pay their bills or going further into debt then the Money Advice Service has a free debt service advisor for local and national help,” emphasises Nick.

“You should start with small steps in terms of overcoming debt, this can be as simple as opening an overdue bill and not to bury your head in the sand.

There are lots of supportive groups and organisations out there, including Money Advice Service – we are all here to help and nobody will judge.”

Services providing free, impartial advice in terms of overcoming debt include Citizens Advice, National Debt Line, and Debt Advice Foundation (www.debtadvicefoundation.org), Nick adds: “Remember, you don’t have to go through hardships alone. In addition to the monetary side of things, it is very easy for life to throw you off track and the chances of this happening at winter increases. Planning ahead is important.”

A guaranteed way to plan ahead is to ensure you are claiming all the benefits you are eligible for, as Nick advises.

Regardless if you have fallen into debt due to leaving employment because of illness or disability, or you are unsure of what you are entitled to: there are a plethora of options to help you keep financially stable.

FOR MORE INFORMATION

Free, impartial financial advice is available from the Money Advice Service (www.moneyadviceservice.org.uk), Citizens Advice (www.citizensadvice.org.uk) and National Debt Line (www.nationaldebtline.org).

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ON THE JOB WITH A

GUIDE DOG TRAINER Guide dogs play a prominent part in the lives of people with visual impairments. We take a walk with Guide Dog Trainer Sam and one of his current pupils, Bertie, to find out more about the invaluable work being done

C

dogs enjoy it so that’s my favourite part,” admits Sam. “Often on the day when the dogs move on you get people saying don’t you feel sad, but I feel quite proud.”

This pride in his pupils continues when they are matched to their future owner, Sam says: “When you see a dog go on and it’s happy with its tail wagging it’s great, they’re working out there with someone, doing a great job weaving down a busy street and they’re keeping someone safe.”

oming from a background of intense training, the dogs are an aide and a companion for many across the UK, and, during the last three years Sam has worked as a Guide Dog Trainer.

He is responsible for taking hopeful puppies through their early training until they are ready to be matched with their future owners and start making a difference to people’s everyday lives.

TRAINING

Working in central London, Sam’s pupils spend the first few weeks getting to know him, but from the moment he first sees them it is an assessment, he says: “You are assessing the dog when it is throwing toys thinking, ‘this one likes tug and I can use that in part of the training’, or saying ‘this one doesn’t like toys but loves biscuits, I’ll use that.’”

Obedience and responses to simple cues like sit, stand, wait, and how well they can focus is a priority during these first few weeks of training. “The other bit is exposing the dogs to the environments where they will be working,” explains Sam. “Taking them on walks and working out their strengths, weaknesses and any issues.”

PRIDE

After the dogs have received this initial training it is time for them to take their first walk and put it into practice. “I always love the first harness walk; the

ASSISTANCE

They’re making such a difference and that’s my favourite bit as well

Keeping their owner safe is a guide dog’s main duty and this assistance can be life-changing for someone who is visually impaired.

“They’re making such a difference and that’s my favourite bit as well, they go on and do such a great thing,” emphasises Sam. “I play a very small part in what we do, but for me it’s always about the owners.

“I love the dogs but we are a people charity, we are here to make a difference.”

There are currently over 4,950 guide dog partnerships in the UK, helping people with a visual impairment lead independent lives. Sam’s role in their journey is just the beginning.

FOR MORE INFORMATION

Further information on how to become paired with a guide dog is available from Guide Dogs UK, guidedogs.org.uk

Read the full interview with Sam online at www.enablemagazine.co.uk 54 enablemagazine.co.uk

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REVIEW

Kia ProCeed The Kia ProCeed brings a bit of shooting brake style to the small family estate market and is all the more stylish for it, says Alisdair Suttie

INSIDE Kia has deliberately made its ProCeed a slightly less obvious estate. The result is the ProCeed isn’t quite as generous in its boot as the biggest contenders in the sector. However, a boot that offers 594-litres of space with the rear seats in place is not to be sniffed at.

Tip the 60/40 split rear bench and you free up 1465-litres of carrying ability.

For those who need more room, the Kia Ceed Sportswagon is available as a more traditional estate, but the ProCeed can more than enough to manage most needs. We

found the low loading sill and large tailgate easily allowed for fitting in a wheelchair, though there is a drop from the sill to floor to negotiate.

Kia provides a surprisingly large amount of underfloor storage to securely stash valuables or keep loose items. In the main cabin, there are also plenty of cubbies and cupholders. The main dash is identical to the Ceed hatch’s, which means good quality, ease of use and equipment. In the back seats, the sloping roof line doesn’t detract from headroom.

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DLA weekly rental from Motability equates to the total allowance.

Find out more at www.motability.co.uk

“Kia’s engineers have subtly reworked the steering and suspension to deliver a sharper drive

“

EQUIPMENT Reflecting the sporty look of the ProCeed, it comes in three trims which, in ascending order, are GTLine, GT-Line S and GT. The GT-Line has 17-inch alloy wheels, gloss black exterior trim, rear privacy glass, automatic headlights and wipers.

Inside, there’s cloth upholstery, height adjustable front seats with electrically powered lumbar support, a heated steering wheel and front seats, and eight-inch touchscreen with Sat-Nav and reversing camera.

Move up to the GT-Line S and you gain larger alloys, sunroof, leather seats and electric adjustment for the front pair. The S also has a powered tailgate, uprated stereo and wireless phone charging. Pick the GT model and its exterior has red exterior trim details and red seat stitching, plus cruise control as standard.

DRIVING The ProCeed lives up to its looks with a drive that is surprisingly lively and engaging for a car that’s predominantly a family hatch crossed with an estate.

Kia’s engineers have subtly reworked the steering and suspension to deliver a sharper drive than the Ceed hatch or estate. It’s not quite as pin sharp as a Ford Focus, but more than agile enough to entertain.

Just as vitally, the changes to the ProCeed do nothing to undermine the car’s comfort or refinement. It flows down bumpy roads in a calm, composed manner so you’re barely aware of any bumps or upsets in the surface. At higher speeds, all types of noise are impressively muted inside the cabin.

There’s a choice of 1.4- and 1.6-litre

turbo petrol engines and a 1.6-litre turbodiesel. The smaller petrol and diesel are available with a six-speed manual or seven-speed automatic gearbox, while the larger petrol is only offered with the auto box. If fuel economy is your prime concern, go for the diesel but don’t discount the 1.4-litre petrol for its superb refinement.

SUMMARY The Kia ProCeed is a welcome dash of something different to the small estate market that blends looks, space and a keen drive.

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Product Roundup At home or for care professionals, we look at the must-have accessibility aids

MOBILITY

THERAPY

6000 WHEELCHAIR LIFT

CORNER SEAT

Gartec Home, POA www.gartechome.com, 01296 397100

Jenx, POA www.jiraffe.org.uk, 0114 285 3376

Available in three sizes and suitable for children aged six months to approximately 10 years: the corner seat has an adjustable back for height to support during long sittings.

Similarly, an abduction block is used to help keep a child well positioned. This is the perfect first seat for children.

MOBILITY

MID-SIZE SCOOTER

Rascal Vista, POA www.electricmobility.co.uk, 0800 252 614

Add stylish accessibility to your home with Gartec’s most popular and flexible home lift. Boasting up to six-floor travel and 410kg capacity, the 6000 is ideal for wheelchair users and passengers together. The family-safe, compact design looks great tucked away or on display, and with doors on different sides it works with your home flow. The range of stunning design options, including glass, colours and flooring, compliment any home design.

Get from A to B with ease thanks to the mid-size pavement scooter from Rascal Vista. Providing plenty of leg room and easy charging, the scooter also benefits from quick release features and the scooter can dismantle into six easy-to-lift sections. The scooter may be lightweight but it is still extremely robust.

MOBILITY

HOME

TRANSIT WHEELCHAIR

ADJUSTABLE BED

Karma, £439 www.careco.co.uk, 0333 015 5000

A lightweight wheelchair, the new Ergo Lite 2 Transit Wheelchair weighs just 8.7kg, with detachable footrest hangers with additional pressure redistribution to prevent a user sliding down the seat. The lightness of the Karma wheelchair doesn’t detract from its practicality and allows for ease of use when manoeuvring.

Medley Ergo. £660.00 inc VAT www.nrshealthcare.co.uk, 0345 121 8111

SUPPORT

SLING BACK V2

Providing the best balance between budget, functionality and quality, the Medley Ergo adjustable bed allows for a range of height combinations. The design of the bed allows for greater comfort for a client whilst creating the ideal position for a carer. When purchased through NRS Healthcare installation is included.

WheelAir, POA wheelair.co.uk, 0141 432 0425

Shipping from November 2019, the Sling Back V2 is a backrest with an integrated WheelAir system.

The canvas backrest has been taken to the next level, combining carefully selected fabric and foam to enhance back support. The backrest is available in six widths to fit all manual or power chairs.

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GRIPWARE SCOOP DISH

The Ability Superstore, £14.99 www.abilitysuperstore.com, 0800 255 0498

Eating from standard plates can cause challenges for people with mobility issues. The GripWare scoop dish features a low front and high back, ideal for people with limited motor co-ordination or only have use of one hand. Versatile, the plastic dish is microwave safe and can be gas autoclaved.

STYLE

SENSORY

SHOPPING TROLLEY

ORCAM MYREADER 2

Drive Devilbiss, POA www.drivedevilbiss.co.uk, 0845 0600 333

OrCam, POA www.orcam.com

Simple, intuitive and a technological step forward: OrCam MyReader 2 can read any printed or digital text to support people living with visual impairments. Easy to use by people of all ages, the product can read newspapers, books, menus, signs and is discreet without the need to use the internet.

The Shop N Sit comes with a lightweight robust frame to allow for ease of use. With two functions, the trolley can be used for storing shop bought goods and seconds as a seat, in one attractive and modern design. The trolley is available in lime green and slate grey.

MOBILITY

MEDICATION

WEEKDAY PILL DISPENSER

EEZEEGO-LW1+

Living Aids UK, £3.30 www.livingaidsuk.co.uk, 0800 999 6659

EeZeeGo, £1,499 www.eezeego.co.uk, 07488 398886

At 24kg the EeZeeGo-LW1+ is one of the lightest folding electric wheelchairs, with automatic fold and unfold as standard, fitting easily into the boot of most vehicles when folded.

It’s small and portable for all car, train, and airplane travel, safely supporting up to 150kg/330lbs carry weight and available in charcoal black colour.

A handy, compact weekday pill dispenser provides a simple reminder for those requiring guidance when taking medication. The simple-to-use operation requires users to simply click a button to rotate compartments to select the correct day. This product is perfect for in-home use, whilst travelling or on the go.

STYLE

PATTERNED KERCHIEF

Fledglings, £8.95 fledglings.org.uk, 0203 319 9772

Keep clean and comfortable whilst eating with the side fastening kerchief from Fledglings. The Velcro side fastening means the kerchief is easy to put on and remove, with an absorbent mid layer of towelling and waterproof breathable backing this is a practical and essential addition to comfort in eating.

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Subscribe to Become a subscriber and get the nation’s favourite disability lifestyle title delivered direct to your door every other month

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ews, interviews, real life stories and the latest must-have products, Enable Magazine is the UK’s award-nominated disability and lifestyle title.

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By becoming an Enable subscriber, you’ll get every issue of the magazine delivered direct to your door every other month – that means no queuing up at your local distribution point, and never miss out on any of the action from Enable! So, what are you waiting for?

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28/10/2019 11:25

Everyone’s situation is unique so we provide legal advice to suit you Our specialist team of Personal Injury, Medical Negligence, and Community Care lawyers are passionate about solving complex problems and delivering solutions for children and adults living with an injury, illness or disability. We want to do the best for you and want to make a difference to your life and to the lives of the loved ones around you.

Our specialist team of Personal Injury, Medical Negligence, and Community Care lawyers are passionate about solving complex problems and delivering solutions for children and adults living with an injury, illness or disability. We want to do the best for you and want to make a difference to your life and to the lives of the loved ones around you.

Our Personal Injury and Medical Negligence team can support you with claims arising out of range of different injuries such as: ●

Brain Injury

●

Fatal Injury

●

Spinal Injury

●

Medical Misdiagnosis

●

Birth Injury

●

Amputation Injury

We understand that access to rehabilitation and treatment, or education, health and social care provision capable of meeting a need for care and support is vital for the injured person and their family. We have access to the very best rehabilitation services and medical treatment providers in the country and will utilise our contacts to provide you with the best possible rehabilitation.

Our Personal Injury and Medical Negligence lawyers work collaboratively with our Community Care team to ensure that we support individuals and their loved ones to access statutory services until such time as we can agree an interim payment or settlement of your claim.

Our Community Care team can support you with the following: ●

Accessing special educational provision through an EHCP or providing support to challenge refusals to amend or an issue an EHCP.

●

Accessing NHS Funded Care packages such as NHS Continuing Healthcare, the NHS Funded Nursing Contribution, a jointly funded package of care, or Section 117 Aftercare. We can support you to challenge decisions not to provide NHS funded care along with help to negotiate care packages.

●

Accessing Social Care services.

●

Support with all aspects of mental capacity, including both property and financial, along with health & welfare matters.

Tim Blackwell | Partner Tim is head of the personal injury and clinical negligence team. He has over 30 years’ experience in all aspects of personal injury litigation involving catastrophic and fatal injury. He has particular experience in dealing with cases involving brain and spinal injury and injuries arising out of clinical negligence.

Tim is recognised and accredited by the Law Society (Personal Injury Panel) and the Association of Personal Injury Lawyers (Senior Litigator).

Tim has extensive experience of dealing with cases in all Courts and tribunals including the Court of Appeal, High Court and Coroners Court.

Tim is passionate about securing the very best possible rehabilitation for his clients and the maximum financial recovery possible to ensure their financial security.

Paula Barnes | Partner Paula is a senior qualified solicitor and partner with over 25 years’ experience in clinical negligence, community care and public law matters.

Paula undertakes clinical negligence claims at all levels, including catastrophic brain damage cases, cerebral palsy and acquired brain injury and spinal injury cases. Paula has experience in dealing with claims in a variety of fields of medicine. She has been extensively involved in the management of claims in the High Court, Court of Appeal and Coroners Court. Paula has a reputation for total dedication to client care and has regularly obtained large awards of compensation through negotiation, court proceedings and mediation on behalf of victims of medical accidents. Her clients are often the most vulnerable in society; the elderly, disabled and children.

For effective legal advice, please contact us now on:

0330 053 9756 | claim@LA-law.com | www.lesteraldridge.com

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11/10/2019 10:38

28/10/2019 12:17

life-saving effect of sport

The

enable sport

Three years after Commonwealth Games silver medallist, Stephanie Inglis was involved in an accident that left her fighting for her life, she’s making her triumphant return to the judo mat, as a sensei, helping the next generation of judokas find their passion for the sport

I

remember teaching my primary classes that morning, meeting my driver, then getting on the bike and heading back to my accommodation for lunch,” Stephanie (Steph) reminisces.

“But I don’t remember anything about the actual accident until six weeks later when I woke up in Edinburgh.”

In 2016, Stephanie was teaching English at a school in Vietnam, after taking time out of her judo career following a knee-injury. Just two years previously, Steph had represented Scotland at the 2014 Commonwealth Games in Glasgow, winning a silver medal in the women’s 57kg category.

SPORT

“It was the proudest moment of my life,” Steph remembers. “It was my focus for so long. It was so special being in Scotland, with my family and friends there – people who have supported me through my whole career. It was a chance to compete in front of them. I was hoping that I’d do what I knew I could do and get a chance at the medals. I was so proud and happy.”

Riding back to her accommodation on that May day in Vietnam, Steph’s skirt became caught in the wheel of the motorbike she was riding as a pillion passenger, pulling her off the bike.

She was placed into an induced coma and initially given a one per cent chance of survival. Thanks to her sporting background, she defied all the odds and has made a remarkable recovery.

With her silver medal after the 2014 Commonwealth Games in Glasgow

PICS: © 2014 GETTY IMAGES

“

RECOVERY

“I remember waking up and thinking ‘what’s going on? Why am I in a hospital?’ and being told I had suffered a traumatic

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enable sport Steph and her partner

PIC: ©FERGUS PIRIE

brain injury,” explains Steph. “Knowing I’d had a one per cent chance of survival really threw my world upside down.

“I had to relearn how to walk and talk – there was nothing I could do by myself. I was stripped of all my independence. It was tough. In my head, I always thought, ‘this isn’t where I’m going to be forever’. I always held onto that hope that soon I’d be back on the judo mat and back to my normal self.”

Resolved to compete in judo once again, Steph pushed on with her rehabilitation. However, her hopes were dashed when doctors told her that a return to the martial art, and receiving another head injury, could risk her life.

“I was annoyed and frustrated,” Steph continues. “I would lash out at people trying to help me, especially my family.

I know that’s a side effect of my injury, but I’d get really angry and annoyed.

Then, I would feel all this guilt, because there was no need to and they were only trying to help.”

TEACHING

Though unable to compete, Steph hasn’t let the injury prevent her return to the judo mat: Steph has taken on the challenge of training children in the sport that has been so important to her.

“Having done judo since I was fouryears-old, it was such a big part of my life and I had never known any life without judo,” says Steph. “I started helping at my dad’s classes when I recovered well enough. It was nice to still have a connection to the sport.

“I was away from it for a year and a half – I didn’t want anything to do with it because it was just too hard to be around. But I know I’ve got a lot more to give to the sport, even if I can’t do it competitively. I can help the next generation.”

During her rehab, Steph was told that it was her connection to sport from such a young age that ensured she made such a remarkable recovery, which has inspired her decision to start teaching significantly.

“When I think of it in that sense, if I hadn’t been involved in sport and judo for that length of time, I might not be here today,” Steph explains. “So, for me, it’s now more important to get kids involved in any sport. Being involved in sport develops new skills and helps them in so many ways. Socially, mentally, physically, there are just so many benefits.”

STRENGTH

Recovering from a brain injury requires strength, stamina, endurance and a positive mindset – traits that are practiced and honed on the judo mat.

Despite this, Steph’s recovery took time and patience to get her to where she is now.

“I was always pushing to be better and I just wanted to be better instantly,” Steph admits. “It took me a while to realise that I was making good progress – which everyone was telling me – but I always wanted to be making quicker progress. So, it’s just about cutting yourself some slack: you’ll get to where you want to go, you’ve just got to give yourself time.”

Though unable to return to the sport competitively, Steph’s connection to judo is still strong, and she’s able to change the future of the sport, by teaching the younger generation of

…if I hadn’t been involved in sport and judo for that length of time, I might not be here today

judokas to love the sport as much as she does.

“I haven’t given everything I want to the sport,” Steph enthuses. “Now, I’m passing on all my experience to help the next generation achieve their goals and get what they want to out of judo. For me, although I can’t personally do it, I can help others get there and be a part of their journey.”

FOR MORE INFORMATION

Advice and support for brain injury is available from Headway (www.headway.org.uk) and The Children’s Trust (www.thechildrenstrust.org.uk).

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How the service works Discharge from hospital following injury or illness

Brain Injury Community Service

A child can be referred at any point following their injury or illness.

For some children this may be some years after the initial event .

Supporting children and young people with acquired brain injury in the community

Clinical screening A clinical specialist from the Brain Injury Community Service will make contact with the child/family to complete a detailed telephone interview.

Visits and telephone calls Following the initial screening, our clinical specialist may visit the child and their family, either at home or in school. Contact will also be made with other professionals involved in the child’s care.

The Children’s Trust is the UK’s leading charity for children with brain injury. We work with children and young people aged 0-18 from across the UK with acquired brain injury, neurodisability and complex health needs delivering rehabilitation, education and community services through highly skilled teams.

Onward referral

Our Brain Injury Community Service provides goal-orientated rehabilitation delivered in the child’s environment.

If the child has needs which require additional support, our clinical specialist will make the necessary onward referral into local community services, or our specialist multidisciplinary team.

Delivered by specialists from a range of clinical backgrounds, we work with the child and their family focusing on the needs which result from an acquired brain injury. These may be social, emotional, cognitive, communicative and behavioural needs.

Our ultimate goal is to maximise the child/young person’s participation in their everyday life.

We provide a range of support centred around the child or young person, including clinical screening, advice and onward referral completely free-of-charge for children and young people with an acquired brain injury, including those with a concussion. Subject to funding we also offer community-based neurorehabilitation skills packages delivered by our multidisciplinary team.

This service provides the initial support needed when a child is discharged from hospital to home and can also be accessed after an initial injury or illness which, in some cases, can be many years later. This may be because the effects of the injury may not be obvious for some time.

Brought to you by the UK’s leading charity for children with brain injury.

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Additional support delivered by local community services

Community-based neurorehabilitation skills packages Delivered by The Children’s Trust Brain Injury Community Service, skills packages include understanding acquired brain injury (ABI), developing learning skills, developing study skills, attention and concentration management and many more.

The child’s needs will be met by services in their area.

Long-term Our long-term register provides systematic monitoring of a child’s needs at key stages.

Making a referral is simple and can be made by anybody involved in the child’s care. www.thechildrenstrust.org.uk/bics bics@thechildrenstrust.org.uk 01737 365 864 Registered Charity No. 288018. The Children’s Trust, Tadworth Court, Tadworth, Surrey, KT20 5RU. TCT645 Enable Nov 2019.

28/10/2019 12:08

enable employment

GET INTO WORK WITH

NHS Lothian

Providing a comprehensive range of primary, community-based and acute hospital services, NHS Lothian is full of opportunities for a career in healthcare. How could their employment programmes benefit you?

N

HS Lothian are continually offering a wide range of inclusive employment opportunities, including programmes to support development of employability skills, especially tailored for young people living with a disability.

As a Disability Confident employer, NHS Lothian could have a career for you.

Paul Clapperton, who has a learning disability, has reaped the benefits of NHS Lothian’s Project SEARCH programme.

“I was doing volunteering at the time but really wanted to gain employment, be financially independent and meet new people,” emphasises Paul. “Receiving job coaching whilst in a working environment allowed me to learn with guidance and help, so that I would know how to handle situations in a real work environment.”

Having been actively looking for work and applying for different courses, Paul was keen to get additional support with applications and join an environment he felt comfortable in.

and was successful in getting one of the job vacancies.”

AWARD

Providing services across Edinburgh, Midlothian, East Lothian and West Lothian, NHS Lothian employ approximately 26,000 members of staff – all of whom provide essential roles in delivering high quality healthcare to our communities. Paul, has been so successful in his role that he was nominated by his colleagues and won NHS Lothian Staff Member of the Year Award for 2019.

“I was really surprised when I found out I have been nominated and then shortlisted for Staff Member of the Year.

My manager told me that he nominated me because I have overcome so much,” says Paul.

“It’s great, I love [working with the NHS]. I really enjoy working in the team I am in,” adds Paul. “I have meetings with my manager where we discuss my progress and they suggest things that I can go on and do to help my development. I am much more confident, and more independent with a holiday booked for next year.”

The next NHS Lothian Project SEARCH is running in 2020 with applications open from November 2019. Find out more by visiting www.west-lothian.ac.uk/courses/ course-list/project-search

Paul during the awards ceremony

Through Project SEARCH – delivered in partnership with NHS Lothian, City of Edinburgh Council, Edinburgh College and third sector organisation, Into Work – Paul was supported into employment.

“When I started Project SEARCH, we went on a tour of different departments within the NHS. As part of this tour, we visited the health records department and right away I felt that this was a department I would like to work in,” enthuses Paul.

Through the programme’s 12-month model of supported work experiences, employability skills training and job coaching, Paul was able to see a range of areas to learn what suited him and develop the employment skills to be able to apply for posts.

It wasn’t long before an administration role came up, which Paul wished to apply for.

Paul continues: “With the support of the Project SEARCH team I applied for

PIC: © CHRIS WATT PHOTOGRAPHY

PROJECT SEARCH

FOR MORE INFORMATION

Learn more about Project SEARCH in NHS Lothian by emailing, workplacements@nhslothian. scot.nhs.uk or visit NHS Lothian careers.nhslothian.scot.nhs.uk

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Employment Opportunities Over 100 careers paths – one employer Know what you want to pursue as a career, or looking for ideas? Interested in employment or placement opportunities?

We recognise the value that everyone brings to our organisation. Through our ‘Job Interview Guarantee’ we will consider you on your abilities and guarantee an interview where you meet the essential criteria for the post. We have a wide range of jobs at entry and qualified level and offer great opportunities for career development – and much more.

All our vacancies are advertised on: www.jobs.scot.nhs.uk More information on the initiatives NHS Lothian are involved in and details of our modern apprenticeships can be found at: www.careers.nhslothian.scot.nhs.uk Come and see what we can offer for your career in healthcare.

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28/10/2019 17:00

enable education

ACCESSIBLE

Apprenticeships Apprenticeships are increasingly becoming accessible for those looking to earn while they learn. But, what more can be done to ensure disabled apprentices can access equal opportunities in education and the workplace?

A

ccording to the Department of Education, in the 2017/2018 academic year, 42,000 people starting apprenticeships were disabled or had a learning disability. However, with the total number of starts being 375,800, this figure highlights that currently only 11.2 per cent of people doing an apprenticeship identify as being disabled.

PRIORITY

Over two in three employers said that hiring disabled apprentices was a priority for them, but they are not properly equipped, or do not have the right knowledge and experience to offer opportunities that would suit disabled candidates’ needs.

As a result, the Open University (www.open.ac.uk), among other educational establishments, is pushing the government to help UK businesses recruit and retain more disabled candidates to their apprenticeship programmes, ensuring all applicants have the same chance at succeeding in their training.

SKILLS

Apprenticeships allow you to combine studying with learning on the job, gaining valuable work experience in an industry you’re interested in. This means you’ll be employed and earning money, while also working towards a formal qualification.

Apprenticeships give you a chance to develop your skills, and prepare you for the world of work. During your apprenticeship, you’ll be able to hone technical skills that are specific to your chosen industry, making you more proficient and employable.

You’ll also be able to develop soft skills – skills that are transferable and valued in any profession, such as teamwork, communication, leadership, organisation and adaptability.

OPPORTUNITIES

If you’re interested in pursuing an apprenticeship, there are increasingly more accessible opportunities for disabled students, and places you can go to for advice.

Disability employment charity, Remploy, has partnered with MAXIMUS Training, delivering education to companies to ensure they’re as equipped as possible to support disabled apprentices.

The NHS offers apprenticeships for those looking to launch their career in healthcare. Their Apprenticeships for All programme, ensures their regional branches can offer equal opportunities to disabled applicants.

The Open University also offers different apprenticeship opportunities: from digital technology and nursing, to police constable and social worker apprenticeships. These are flexible and at the end, you’ll have achieved a nationally recognised degree

qualification, too.

Disability Rights UK also provides their Into Apprenticeships guide, giving information on how to apply for an apprenticeship, how to disclose your disability, and how to ask for support or reasonable adjustments if successful.

With the government aiming to reach their goal of increasing the number of disabled apprentices to 20 per cent by 2020, there’s still work to be done to ensure they meet this target.

However, with educational bodies such as the OU pushing for more inclusive apprenticeships, we’re well on our way to seeing the number of accessible opportunities for disabled apprentices rise.

FOR MORE INFORMATION Remploy www.remploy.co.uk The NHS www.nhsemployers.org Disability Rights UK www.disabilityrightsuk.org

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28/10/2019 11:46

Learn • Challenge • Explore • Experience Outdoor residential and day experiences in the stunning Kielder Water & Forest Park.

Our innovative programmes encourage children and young people of all abilities to learn more about themselves, build confidence and self-esteem through challenging and adventurous activities.

We are experienced in working with young people with physical, sensory and learning impairments, providing an inclusive, fun and exhilarating experience in a safe and supported environment.

We are fully flexible and can arrange bespoke programmes to accommodate groups.

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enable education

LEARNING ON YOUR TERMS R

egardless if you want to complete a short course to improve your professional learning, or are hoping to embark on a degree, there are plenty of options to suit your needs and get you to where you want to be in your career.

CONTROL

There are many benefits of distance learning, the main being you can take control of your studies and take things at your own pace, from the comfort of your home. You will complete classes, assignments and exams online, at a time and place that works for you.

“Distance learning allows you to be flexible and organise your studies around your lifestyle and other commitments,” explains Nicola Turner, policy executive at UCAS. “For students who need medical

Students may find that learning at their own pace means they can learn in the best way for them

care, distance learning means they won’t have to miss lectures to attend appointments or hospital stays, or if they feel unwell they can work around it.

Students may find that learning at their own pace means they can learn in the best way for them.”

Distance learning is also a positive option if you have mental health issues.

Taking control of your own learning can be hugely beneficial, and reduce levels of stress and anxiety.

OPTIONS

If you’re considering pursuing flexible learning, there are a plethora of different options you can look into, to find the best courses and institutions to suit your interests and needs.

The Open University (OU) is the most famous provider of distance learning, with over two million students gaining an education through their flexible courses.

However, the OU is by no means the only provider of distance learning, with an increasing number of universities across the country now offering online learning courses. Prestigious institutions including Edinburgh, Liverpool, Manchester and Nottingham Trent are just a few that offer distance learning to their students.

ADAPTATIONS

“Every university and college must, by

Distance learning is making education more accessible.

If you want to take your education to the next level, flexible learning could be the right path

law, make reasonable adjustments to enable a disabled student to access their campus and courses,” emphasises Nicola. “It’s equally important that students considering distance learning options do their research and speak to the disability adviser or support team to see what support they can offer – and to understand whether any residential or campus events will be accessible to them.”

Every university should have support in place for disabled students, for many of whom distance will be the preferable method of learning. Regardless of whether you’re learning through distance or on campus, you’ll be able to access the same level of support as students attending classes.

With more and more universities taking disabled students’ needs into account and offering flexible learning, the barriers in the way of education continue to decrease.

So, if you’re looking for an opportunity to continue your education, distance learning might be right for you. You never know where it may lead you.

FOR MORE INFORMATION

To find out more about your distance learning options, visit the Open University (www.open.ac.uk) or UCAS (www.ucas.com).

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The Thistle Assistance Card is available in a variety of formats and languages. For more information and to have a physical card sent to you please visit or call your region:

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Start using TODAY - Search for Thistle Assistance Card and download now!

073_EN_ND19_ADV.indd 73

28/10/2019 16:38

The top INCLUSIVE

employers Accessibility has become a focal point in the workplace, with more opportunities for disabled job seekers. We spotlight the top employers in the UK who are leaders of the government’s Disability Confident Scheme

LLOYDS BANKING GROUP The bank’s Access Network is available for disabled staff to communicate and access support.

With annual events and initiatives, members can receive mentoring opportunities from a company that takes staff welfare seriously. Lloyds recently partnered with Mental Health UK – to help break down the stigma within the workplace – alongside Remploy, to promote an inclusive workplace.

BT Providing flexible working to all members of staff, employees can jobshare, work from home or arrange alternating hours to best meet your needs. Through their Business Disability Forum ‘disability smart’ silver standard award, BT can share their practices with other companies to raise awareness of accessibility.

The company also have their own unique Disability and Carers Passports, which ensures reasonable adjustments are recorded, ensuring an individual’s reasonable adjustments are made a priority and are always met.

74

CHANNEL 4 Aiming to improve representation in the media, Channel 4 runs several innovative schemes. Their Paras Production Training Scheme, helps disabled people gain the support needed to launch their career in television. Opportunities are available across the UK, so keep an eye out for applications opening in 2020.

The company guarantees interviews for all disabled applicants holding the essential skills and experience for the role. They’ll work with you to ensure any adjustments needed are met, meaning you can compete with other candidates on a level playing field.

EVERTON FOOTBALL CLUB As a Disability Confident employer, Everton Football Club guarantee an interview to every disabled candidate that meets the minimum criteria for the role. Similarly, the club is also part of the Workplace Wellbeing Charter, putting staff wellbeing and mental health at the forefront of their policies to ensure everyone is mentally confident. Everton is also partnered with the Autism Charter, providing opportunities for autistic fans to work as stewards on game days.

SAINSBURY’S High-street supermarket, Sainsbury’s has several initiatives in place to help disabled job seekers and employees.

The chain run their job creation scheme, You Can – supported by Remploy and Mencap – which works to remove the common barriers disabled people face when looking for employment. Since 2008, 26,000 people have found employment through the scheme, and disabled employees have provided feedback which has seen Sainsbury’s launch various initiatives for autistic customers and shoppers who live with dementia.

enablemagazine.co.uk

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enable employment

SANTANDER Santander run different groups for staff, depending on needs and circumstance. The bank supports disabled employees to network with each other and discuss any issues they may be having in a safe space. Similarly, Santander’s Mental Wellbeing network promotes a healthy work-life balance and understanding around mental health conditions. Also available is the Parents and Carers network, where carers can speak with others in a similar situation, and share advice.

POST OFFICE At the Post Office, you can be sure your needs will be considered throughout the recruitment process.

With flexible working practices in place, you can discuss your requirements and be sure your workplace will be adapted to you.

The Be You group also aims to make continual improvements, by listening to the feedback of employees, including mental health policies.

VIRGIN MONEY Virgin Money offer each applicant a tailored recruitment plan, taking disability into account throughout the

employment process. Understanding the diversity of disability, Virgin Money know each candidate has to be treated as their own individual.

The plan is made up of three parts: physical environment and equipment; support and assistance; and interview format and tasks.

ZURICH Zurich’s Minds Matter has been launched to normalise discussing mental health in the workplace, and provide support to colleagues who need it. They also have a Disability Inclusion Group, for disabled employees to network and share their experiences. Publishing yearly employment statistics, Zurich does this in a bid to be open about their inclusion and give prospective employees a better understanding of their policies.

ROYAL BANK OF SCOTLAND Accessibility is ingrained in the workplace culture at the Royal Bank of Scotland. The bank’s Enable network aims to promote awareness of disability within the staff community and ensure disabled colleagues can reach their full potential with the support of management and employees alike.

THE LIST CONTINUED The following companies have Level Three Disability Confident Leader status – the highest possible level on the government’s scheme:

KPMG

KPMG is discussing disability at a board level for the first time in their history.

MI5

The security agency strives to be inclusive, even winning the BDF’s Disability-Smart Award in 2019.

BARCLAYS

The bank is committed to increasing opportunities for disabled people at work.

IPO

As a government body, IPO runs a plethora of inclusive initiatives.

JOHN LEWIS

The store is committed to making adjustments for disabled staff.

HM’S PRISON AND PROBATION SERVICE

An executive agency, reasonable adjustments are made from the interview process and beyond.

FORD MOTOR COMPANY Proudly has a diverse working environment.

NETWORK RAIL

The train company runs several accessible schemes.

HM REVENUE AND CUSTOMS

Providing disabled jobholders access to a range of roles.

JAGUAR LAND ROVER

Committed to providing equal opportunities in employment.

FOR MORE INFORMATION

Learn about the most inclusive Disability Confident employers, visit disabilityconfident.campaign.gov.uk

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Autism training and development With over 50 years of experience, no one has more practical knowledge of autism The National Autistic Society is here to transform lives, challenge attitudes and build a society that works for autistic people.

We offer: • Autism Accreditation programme • Conferences and Awards • Consultancy to suit the needs of your organisation • Essential newsletters for professionals • Dedicated residential and supported living for adults • Specialist schools • Training: at your work place, scheduled open access events, or online modules • University courses and modules

Autism Professionals Conference

27-28 February International Convention Center, Birmingham This two-day CPD certified conference is a cross-discipline event attended by clinicians, social workers, commissioners, and education professionals.

Book now to hear the latest about autism from leading experts and share best practice.

Highlights from the programme include: • school for children with mental health and anxiety issues • dogs in the classroom • reforming the curriculum • improving communication • autism and very strong interests in the classroom • multi-disciplinary working.

Find out more

www.autism.org.uk/professionals The National Autistic Society is a charity registered in England and Wales (269425) and in Scotland (SC039427)

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24/10/2019 16:43

enable employment

STRESS

Clocking out It’s normal to feel stress in the workplace, but when it becomes all-consuming stress can be debilitating.

With more pressure placed on our career to succeed, stress in the workplace is having a significant impact

E

veryone has felt stressed at some point in their day-to-day life. In fact, stress can be beneficial to push us further. However, when stress in the workplace goes beyond an extra push for productivity it can be incredibly detrimental to a person’s health. In fact, during 2017/18, 15.4 million working days were lost due to stress.

For Cris, working as a chef saw him in a fast paced environment, but the stress soon became overpowering.

Currently being assessed for autism, the impact of sensory overload and stress led to Cris becoming mentally ill and leaving the workplace two years ago.

“

I think being autistic stopped me from telling managers how the stress was affecting me

“

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enable employment

fight or flight.”

However, despite mounting stress “I never really knew that I was leading to anxiety, and depression autistic,” explains Cris. “Now I know both Cris and Al felt they couldn’t that the problems that I had with speak to their employers. people coming into my own personal space, people moving my equipment BARRIERS – as I would organise everything and “I didn’t really go to my employer; it put it in place, really regimented – felt that because it was expected of this would throw me off and I would everyone, then why would they make get upset. For them, it was a bit of a an exception for me? I think [my joke.” employer] was aware of my anxiety Working in the hospitality and depression and were aware that environment can be gruelling, with I was on medication, but that still expectations made by employers didn’t stop them phoning me up on that may not happen in another my days off or expecting you to go in working environment. For Cris, early or stay late,” remembers Cris. he experienced calls on his days “Being able to go and talk to off to cover shifts or picking up a your employer and knowing they colleague’s workload. understand would have been a big This demand increased the help,” he adds. Cris also credits being pressure on Cris, who was soon autistic as a challenge when it came living with debilitating stress, anxiety, to, not only working in the kitchen and on medication. And Cris environment with bright lights is not alone. and noise, but speaking Al Phillips also to his managers. “I think experienced first15.4 million being autistic stopped hand the impact working days me from telling managers being overworked how the stress was have been lost can have on your affecting me,” he says. mental health. due to stress In Al’s experience, the In April of 2014, Al stigma that surrounded was in the grips of a mental health within the mental health crisis. After police force meant he didn’t feel continually going to his GP comfortable to open up; and when requesting help, it wasn’t until Al he did, Al was dismissed. “On a was in hospital after he had injured couple of times I had spoken up and himself that he was assessed and said I was stressed the managers just diagnosed with post-traumatic stress stated that everyone was stressed,” disorder (PTSD). recalls Al. Working as a detective constable However, opening up is the with the police force, Al was hardest first step to getting support, in an incredibly important and but it is pivotal to break down high-powered role. However, the barriers and stigma. continued pressure of being given work and told to keep exerting HELPING HAND himself saw Al’s mental health Stress isn’t a weakness, but it can impacted. have debilitating consequences and “I kept thinking to myself that I heighten an underlying disability. Cris couldn’t do it all,” remembers Al. says: “After going through all of my “Everything was a priority; when adult life struggling in the workplace everything is a priority I couldn’t with my autism and depression, if I seem to do anything. You’re juggling was managed properly they would all these plates at the same time and have got so much more out of me. waiting for them to crash. It made To think, as well, that the support me feel very heavy. would have helped me and others to “When you’re getting no help and understand the problems that I was told to work harder, it’s like being on having.” the running machine at top speed Getting in touch with mental and told to run faster. You can’t,” health charity, Mind, both Cris and adds Al. “I wanted to run away, it was

“

Saying it out loud, you won’t believe how good that will make you feel

“

PRESSURE

Al managed to find solace in their darkest times. Cris joined Mind’s Elefriends, a supportive online community where people can share their struggles, get guidance, and know that they’re not alone in their experiences.

Cris enthuses: “It’s amazing to know that you’re not alone; there are so many people out there that are going through the same experience and everyone on Elefriends is accepting and you can talk about it.”

Similarly, Al became a Blue Light Champion. A Champion is an employee or volunteer in the emergency services, acting in the workplace to raise awareness of mental health conditions to challenge stigma.

“You’ve got to find someone or an organisation that can help you get your words out,” advises Al. “If it’s Samaritans, Mind, someone at work: saying it out loud, you won’t believe how good that will make you feel.”

And Cris agrees: “Talking to someone is the most important thing, and it is the first step to take.”

Stress in the workplace is unavoidable, but when it encompasses your life, it’s essential you get help – and there is help available no matter your situation.

FOR MORE INFORMATION Additional support in the workplace is available from Mind (www.mind.org.uk), and Samaritans (www.samaritans.org) on 116 123.

You can join Elefriends for free by visiting, www.elefriends.org.uk

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Committed to equal opportunity We’re Scotland’s public-sector auditor, responsible for ensuring that the Scottish Government and public-sector bodies are held to account for the proper, efficient and effective use of public money.

We are committed to equal opportunity and to a culture that respects difference and we welcome applications from all sectors of the community.

We offer an interview to all disabled candidates who meet the essential criteria. As an employer, and in our audit role, we play a leading part in the promotion and application of diversity and equality.

2018

www.audit-scotland.gov.uk/careers

NHS Greater Glasgow and Clyde is the largest health board and provider of healthcare in Scotland and one of the largest within the UK. Alongside career opportunities in the nursing and medical professions, we offer roles within administration, facilities, estates, allied health professions, IT and healthcare sciences.

These positions are located in hospitals, health centre clinics, pharmacies, as well as dental, GP and optical practices throughout Glasgow and Clyde.

Hundreds of outstanding opportunities within our Board are advertised each month. As a Disability Confident Employer we operate a Guaranteed Interview Scheme for disabled applicants who meet the minimum selection criteria. Over the past few years, we have successfully recruited over 100 Modern Apprentices, enabling us to continue to deliver high quality healthcare.

Information about working with us can be found at: www.nhsggc.org.uk

Kidz to Adultz North

Thursday 14th November 2019 9.30am - 4.30pm EventCity, Barton Dock Road Manchester, M17 8AS One of the largest FREE UK events supporting children & young adults up to 25 years with disabilities and additional needs, their families, carers and the professionals who support them.

165+ Exhibitors

Free CPD Seminars

Children Welcome

Register online for your FREE entry ticket - www.kidzexhibitions.co.uk Tel: 0161 607 8200 Email: info@disabledliving.co.uk #kidztoadultz

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classifieds

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Self Catering cottage with wheelchair access. New one bedroom, super king size bed or twin depending on your needs. En-suite wet room, open plan living, dining kitchen. Set in 7 acres of rural countryside on the beautiful Isle of Man. W: theretreat.im E: info@theretreat.im T: 01624 890289 M: 07624 464383

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Level drive and ramp Theraposture profiling bed Oxford Mini 140 hoist Freeway tilting shower chair Fully-adapted wet room

Newly-refurbished self-catering bungalow in spectacular scenery, with fabulous views, fully accessible for wheelchair users, and with specialist equipment for disabled guests.

Visit www.meadowsweetbungalow.co.uk to see more pictures of the house, surroundings, and equipment.

If you have any questions about the property, please email: ruthbebb@btinternet.com or call: 07813 321731 / 028 9042 4675

28/10/2019 12:57

enable employment

Aaron

STEPPING STONE TO

employment

Community projects can be a helping hand into employment, providing opportunities and alternative paths to the world of work. We speak to two young disabled people about building their skills and experience with community work projects

J

ust over half of disabled people aged 16 to 64 are in employment in the UK and this figure is on the rise. However, for people with learning disabilities it sits at just 5.9 per cent of people in work. For young people about to embark on the world of employment, it can be a big step to enter employment or higher education straight from school.

Community projects like supported internships and traineeships can provide a helping hand for young disabled people before they decide what career path they would like to follow. These projects provide

young people with essential skills and experience that will go on to aid them both in and out of the workplace.

THE RIGHT PATH

When 19-year-old Aaron, who has cerebral palsy, was approaching the end of his time at school, he was faced with deciding between continuing his studies at college or starting a supported internship. Supported internships are like any other internships but are more adaptable to individuals’ needs.

When Mencap visited Aaron’s school to speak about the Interns and Outcomes programme, his decision was made, he remembers: “I didn’t really

want to do admin as a job so when I saw Mencap had so much variety I thought let me explore this more.”

The Interns and Outcomes programme supports young people with a learning disability to make the step from education to employment through internships.

With dreams to start his own business in the hotel industry, Aaron knew the sector he would like to intern in immediately, he says: “When I started I couldn’t wait to get into the world of work and get into the industry that I wanted to [have a career] in.

“I wanted to work in a hotel to see what it’s like from a worker’s point of

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Keiran

It has given me the opportunity to work and have fun

Keiran

view instead of a visitor’s point of view.”

And, the view of a hotel employee didn’t disappoint Aaron, who had the chance to learn about the different roles in the industry when completing his internship. The breadth of roles he was able to experience on his internship meant Aaron’s passion for hotels and hospitality continued to grow.

NEXT STEPS

Since finishing his internship, Aaron has started a part-time job with Novotel, the chain where he studied, and has been named employee of the month.

“I learnt a lot about employability, how to look smart, timekeeping, and I learnt about internet safety,” explains Aaron. “It gave me the real training that I need to do my job now.”

Completing a supported internship has meant Aaron was prepared for the world of work and attending his job felt normal, rather than a step into the unknown.

Alongside the skills he needed for work, Aaron’s internship taught him valuable life skills like what to do with his payslip, budgeting and how to use the bank. “One of my biggest fears of being in the programme was when I get my pay cheque, what am I going to do, how am I going to spend it – because it is a great responsibility,” explains Aaron.

“We learnt about that, about budgeting and different financial words.”

Now, Aaron would urge other young people to consider a supported internship when they are thinking about their next steps after school. “Don’t wait, just go for it,” recommends Aaron.

“You’ll never regret it if you know what you want to do and you’re hungry to work.”

MOTIVATION

Like Aaron, 20-year-old Keiran, who is autistic, was ready for the world of work after finishing school. Keiran was attending college but knew it wasn’t working for him, he says: “I knew that I couldn’t stay at college – my behaviour wasn’t good and I wanted to work; I felt ready for a bit more responsibility.”

Motivated by his desire for new challenges, Keiran applied for the Yellow Submarine Traineeship programme.

Through two social enterprise cafés located in Witney and Oxford, the programme helps change the lives of young people with learning disabilities and autism by providing a path to work.

After attending a trial shift where Keiran was shown the types of jobs he would do on a traineeship he knew it was right for him. “My attitude towards working has improved so much,” explains Keiran. “It has given me the opportunity to work and have fun.”

PERSONAL DEVELOPMENT Although he was nervous that it

wouldn’t work out at the beginning of his traineeship, Keiran has proved he can succeed to not only his team, but himself, too, even recognising improvements in himself and his work.

“I now enjoy working as part of a team, whereas before I didn’t like working with people the same age as me,” emphasises Keiran. “I have also learnt that if I am finding things hard, I need to tell someone and they will help me.”

As well as the skills he has learnt to aid him in future work, Keiran now feels confident to travel as he gets public transport to the café. Having to learn bus routes, good timekeeping and how to deal with rota changes has benefited Keiran both in and outside of his traineeship.

Community projects like this one are key to getting more young disabled people into work. By offering support, teaching essential life skills and providing pathways into the workplace, the number of disabled people in employment will continue to rise.

FOR MORE INFORMATION

You can get involved in a community work project through Mencap (www.mencap.org.uk) or Yellow Submarine (www.yellowsubmarine.org.uk).

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Christmas at WEST SIDE STOR STORY

23 Nov – 11 Jan JEROME ROBBINS ARTHUR LAURENTS AR LEONARD BERNSTEIN STEPHEN SONDHEIM Based on a conception of

Book by

Music by

LLyrics by

Entire Original Production Directed and Choreographed by

JEROME ROBBINS

NIKOLAI FOSTER Choreographer ELLEN KANE Set Designer MICHAEL TAYLOR Costume Designer EDD LINDLEY Musical Supervisor SARAH TRAVIS Lighting Designer GUY HOARE Sound Designer TOM MARSHALL Casting Director KAY MAGSON CDG Director

Originally produced on Broadway by Robert E. Griffith and Harold S. Prince by arrangement with Roger L. Stevens Performed by arrangement with Music Theatre International (Europe) Limited

9 – 31 Dec CURVE, ROSE THEATRE KINGSTON & SIMON FRIEND PRESENT In association with Hachette Children’s Group and Coolabi Group

LIVE ON STAGE

Based on the bestselling book by

Audio Described Performances: Sat 14 Dec, 2.15pm & Sat 28 Dec, 7.30pm

GILES ANDREAE AE

GUY PARKER-REES

Captioned Performances: Wed 18 Dec, 2.15pm & Thu 2 Jan, 7.30pm

Audio Described Performance: Sat 28 Dec, 4.30pm

Dementia Friendly Performance: Wed 8 Jan, 2.15pm

Captioned Performance: Sat 21 Dec, 10.30am

Relaxed Performance: Sat 4 Jan, 2.15pm

Relaxed Performance: Sat 28 Dec, 10.30am

Signed Performance: Thu 12 Dec, 7.30pm

Signed Performance: Sat 14 Dec, 4.30pm

Touch Tour Performances: Sat 14 Dec, 12.45pm & Sat 28 Dec, 6pm

Touch Tour Performance: Sat 28 Dec, 3pm © Purple Enterprises Ltd a Coolabi Company, Illustrations © Guy Parker Rees

To find out more about our Access Performances or other services we offer, contact us at contactus@curvetheatre.co.uk or 0116 242 3595

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