enable Forget can’t - think can!
www.enablemagazine.co.uk
January / February 2018
UNIVERSAL CREDIT
THE PROBLEM WITH THE NEW WELFARE SYSTEM
FAMILIES ON THE EDGE DEALING WITH VIOLENT AND CHALLENGING BEHAVIOUR
GONE CLUBBING
ACCESSIBLE CLUB NIGHTS FOR ALL
Let the
GAMES
The Brits hoping to make it big at the Winter Paralympics
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WIN
A BREAK IN THE PEAK DISTRICT WITH HOE GRANGE HOLIDAYS
21/12/2017 14:58
Attention anyone who has served in the Armed Forces... Blesma is the leading charity for limbless veterans AND those veterans who have lost the use of a limb or limbs. Many of our Members have lost limbs since leaving military service, but Blesma is also there for all ex-Service men and women who have lost the use of limbs in a traumatic incident after serving. Our Blesma Support Officers are available to offer advice and answer your questions about mobility or living with the loss of use of limb.
Call: 020 8548 7080 email: membersupport@blesma.org or get in touch via the ‘Contact Us’ page at www.blesma.org
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21/12/2017 17:02
enable Forget can’t - think can!
PUBLISHER Denise Connelly denise@dcpublishing.co.uk EDITOR Lindsay Cochrane lindsay.cochrane@dcpublishing.co.uk STAFF WRITER Lorne Gillies lorne.gillies@dcpublishing.co.uk EDITORIAL CONTRIBUTORS Tim Rushby-Smith Alisdair Suttie DESIGN AND PRODUCTION Lucy Baillie lucy.baillie@dcpublishing.co.uk PRODUCTION ASSISTANT Lisa McCabe lisa.mccabe@dcpublishing.co.uk SALES Marian Mathieson marian.mathieson@dcpublishing.co.uk Carl Farnworth carl.farnworth@dcpublishing.co.uk ENABLE MAGAZINE www.enablemagazine.co.uk
DC Publishing Ltd, 198 Bath Street, Glasgow, G2 4HG Tel: 0844 249 9007
© GAVIN CRAWFORD
COVER PRICE £3.00
Enable Magazine
Welcome Happy New Year! And welcome to the first issue of Enable for 2018. A new year is filled with promise and excitement – and at Enable, we’ve got plenty up our sleeves for the months ahead, which we can’t wait to share with you! We’re off to a great start with this issue. Ahead of the Winter Paralympics in March, we’ve been chatting with some of the athletes hoping to hit the slopes in South Korea. We’re crossing our fingers for them making it to the final team. Elsewhere in the world of sport, we’ve been catching up with friend of Enable Jonnie Peacock, following his successful run on Strictly Come Dancing – read all about it on page 14. With the weather outside being so grim, we’re thinking ahead to a bit of sunshine with this issue’s accessible travel section. From overseas destinations to options right here in good old Blighty, we’ve got your travel plans for 2018 covered. Also this issue, we’ve got a special focus on Universal Credit, and we’ve also been finding out about the thousands of young people with MS who are living in care homes designed for older people, due to lack of provision – something which needs to change. In our employment pages, we’ve been taking a look at the Disability Confident scheme, and we’ve also been finding out about a new movement to encourage better awareness of mental health amongst employers. A new year is a time for change, and this, sadly, is my last issue of Enable – after almost seven years working on the magazine, I’m moving on to pastures new in 2018. I promise that I’m leaving you all in very capable hands though – you can look forward to meeting our new editor in the March issue. I’d like to say a huge thank you to all of you for your support since the magazine’s launch in 2011 – Enable’s readers and the team behind the scenes really are the best out there.
Lindsay Cochrane, Editor
EDITOR’S PICKS... 56 FAMILIES ON THE EDGE We find out more about the real impact of violent and challenging behaviour on families. 65 TALKING ABOUT THE A WORD With autism becoming more common on TV and in film, we take a look at some of the success stories. 68 GONE CLUBBING Cutting some shapes on the dance floor is a joy that should be open to all. We find out more about the events encouraging inclusive clubbing.
DON’T MISS… This issue’s competition, where you could win a break with Hoe Grange Holidays! Turn to page 36.
SUBSCRIBE TO ENABLE
You can get every issue of Enable delivered direct to your door, for £25 for two years or £15 for one. Head to www.enablemagazine.co.uk/ subscribe, or call us in the office on 0844 249 9007.
@enablemagazine
@enablemagazine
©DC Publishing Ltd 2018. All rights reserved. No part of this publication may be reproduced or used in any way without prior written permission from the publisher. The views expressed in this magazine are not necessarily those of DC Publishing Ltd. The publisher takes no responsibility for claims made by advertisers within the publication. Every effort has been made to ensure that information is accurate; while dates and prices are correct at time of going to print, DC Publishing Ltd takes no responsibility for omissions and errors.
www.enablemagazine.co.uk
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FROM GOLD MEDALS TO THE GLITTER BALL Jonnie Peacock speaks to Enable about the unexpected turn his career took last year – and what his future holds. CHANGING ATTITUDES Journalist Saba Salman tells us about her fantastic new book project, challenging attitudes towards learning disability.
life TALKING ABOUT THE A WORD Autism is becoming more and more present in public life – even making it onto our TV screens. We check out some successes.
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GONE CLUBBING A night on the tiles isn’t out of the question if you have a disability. One organisation is opening the magic of the dance floor to all.
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NEW YEAR, NEW YOU We take a look at some popular resolutions – and how you could change your life in 2018.
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carers THE GOLDEN YEARS OF CARING There are now more than 2 million over-65s providing care for a loved one – but what’s it like managing your own needs alongside that of someone else? We found out.
enable GUIDE
accessible travel This issue, we’re giving you a little something to look forward to later in the year, with our guide to accessible travel. With destination guides and insurance advice, you’ll be itching to get your break booked ASAP. You can check it all out from page 39 onwards.
PICS: © VICTORIA JONES/PA WIRE; BBC/FIFTY FATHOMS/KESHET INTERNATIONAL
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interviews
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CONTENTS
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spotlight THE PROBLEM WITH UNIVERSAL CREDIT Universal Credit was heralded as a more steamlined system of support – but the reality has been quite different. We found out more.
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SOCIAL CARE AT BREAKING POINT With thousands of younger people with MS living in care homes designed for the elderly, there’s a clear problem in the social care system.
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THE WORLD OF BRAILLE To celebrate World Braille Day in January, we’ve been finding out more about the incredible system that’s opened up the world for thousands of people.
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LOVE IS ALL AROUND When it comes to sex education, people with disabilities are often left out – which can lead to huge problems later in life. We take a look at the importance of discussing sex and relationships for people of all abilities.
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A WORLD OF ADVENTURE WITH VOLUNTEARS The pioneering organisation opening travel up to the deaf community.
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family FAMILIES ON THE EDGE Being the parent of a child who displays violent and challenging behaviour is tough, and there isn’t enough support available. Two mums tell Enable about their families’ experiences.
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care PATHWAYS TO INDEPENDENCE Supported living is changing lives across the country – so how does it work? We spoke with an expert, and a service user shares their story.
sport THE JOURNEY TO PYEONGCHANG A selection of ParalympicsGB hopefuls tell us about their respective sports ahead of the Winter Games in March.
motoring THE REVIEW This issue, we’ve been out on the road in the Mazda2.
employment and education
THE SUPPORT NETWORK If you’re on the job hunt, check out these useful organisations to get you on course.
WIN
Turn to page 36 to be in with a chance of winning a fantastic break with Hoe Grange Holidays in the Peak District!
BARRIERS TO 74 REMOVING EMPLOYMENT The government’s
Disability Confident scheme has seen more than 5,500 employers sign up so far – and they’d got even bigger plans for the year ahead.
IN BUSINESS We caught up 76 BIG with the winner of the Stelios Award
for Disabled Entrepreneurs in the UK to find out how the prize will change things for her business.
HEALTH AT WORK With 78 MENTAL mental ill health in the workplace
costing employers billions of pounds each year, we’ve been finding out more about the scheme that’s encouraging businesses to better support the mental health of their staff.
www.enablemagazine.co.uk
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21/12/2017 15:38
NEWS
The
LATEST A roundup of the disability news stories making the headlines
Spinal Injuries Association Celebrates 10,000th Member SPINAL INJURIES ASSOCIATION, the UK’s leading spinal cord injury charity, has signed up its 10,000th member. Nottingham music teacher Chris Toon was injured in June of 2017 following a motorcycle accident. After receiving support from the organisation’s peer support officers during his rehabilitation, he’s encouraging other spinal cord injured people to get involved with the charity. “They have an ‘ask me anything’ attitude, and whether it’s about intimate matters or
getting daily tasks done, their wealth of experience as people who have been through similar circumstances is invaluable,” Chris says of the support workers. “It’s great to see that another person in a wheelchair can do these tasks, move on with life and look forward to the future. They helped me realise that this – my rehabilitation – was doable and that there is light at the end of the tunnel.” To find out more about SIA’s work, or to join, head to www.spinal.co.uk.
1 IN 5 EMPLOYERS LESS LIKELY TO HIRE DISABLED PEOPLE SHOCKING NEW RESEARCH FROM Leonard Cheshire Disability has found that one in five employers are less likely to employ someone if they have a disability. Of those line managers who are less likely to employ a disabled person, almost three-quarters would be concerned that they would struggle to do the job, while 60% said that they would be concerned about the cost of workplace adjustments when employing a disabled person. Leonard Cheshire say that action must be taken to help make employers understand the real benefits of employing disabled people, and to get rid of the perceived barriers. Neil Heslop, Leonard Cheshire Disability CEO, said: “Employers of all sizes have a huge role to play in closing the disability employment gap. Sadly, too many still seem to have the wrong idea about taking on disabled people. Disabled people can face barrier after barrier in getting a job as a result of attitudes that have no basis.” Leonard Cheshire’s Untapped Talent campaign is calling on the government and employers to do more to help disabled people get into the workplace. They want greater promotion and funding schemes to help more disabled people get into work. Support the campaign at www.leonardcheshire.org.
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www.enablemagazine.co.uk
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21/12/2017 11:46
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21/12/2017 17:19
NEWS
THOUSANDS OF PEOPLE WITH MS ‘NOT DISABLED ENOUGH’ FOR PIP NEW FIGURES HAVE SHOWN that thousands of people with MS are being rejected for Personal Independence Payment as they are ‘not disabled enough’. Since its launch in 2013, a huge 31% of new PIP claims made by people with MS – 4,100 in total – have been ‘disallowed’, according to figures from the MS Society following a Freedom of Information request. A further 1,100 people are said to have qualified for PIP initially, but were later rejected for the benefit after a reassessment. The charity says it’s just another flaw in the benefit’s make up, which also sees 65% of people who appeal the decision having it overturned. MS Society chief executive Michelle Mitchell said: “These latest figures show PIP isn’t just hurting those who’ve been moved across from the old system, but also new people who are trying to get support for the first time. “PIP is meant to help manage the extra costs of living with a disability and assist people to be more independent. But it’s a tougher system than DLA, with much stricter rules. In too many cases, assessments fail to reflect the barriers people with MS face.”
Huge success for Winter Wonderwheels event
IN DECEMBER, MORE THAN 600 people headed to Buckinghamshire to walk, run, push and wheel their way around the picturesque Dorney Lake as part of the Winter Wonderwheels event. Following the success of the summer’s Superhero Tri, this inclusive sporting event from the same organisers invited people of all abilities to head along and get active, alongside a host of celebrities. The UK’s first festive disability sports event, the rulebook got thrown out the window to enable everyone to take on the route, in their own time and style. Thanks to the playful ‘anything goes’ environment, participants turned up in their hundreds.
Celebrity team captains included Paralympian Sophie Christiansen OBE, Channel 4 presenter JJ Chalmers, Paralympic champion Kadeena Cox and comedian Adam Hills. “To see so many people dressed up in fun costumes and heading round the course in all kinds of amazing gadgets and gizmos was simply incredible,” said npower team captain Jonnie Peacock. “The best thing of all was meeting people who achieved things today that they once thought impossible.” You can sign up for the next Superhero Tri, taking place on 18 August, at www.superheroseries.co.uk.
CARERS ‘HIDDEN’ IN THE WORKPLACE DESPITE ONE IN NINE Brits having caring responsibilities, 62% of people in work say they ‘don’t know a single colleague’ who cares for an ill, older or disabled loved one – highlighting the desperate need for greater awareness of working carers. Research carried out by Carers UK has shown that unpaid carers are going under the radar in the workplace – and are likely missing out on support and understanding as a result. Just 42% of workers said they would feel confident in directing a colleague towards support if they were in a caring role. Carers UK say that this isn’t good
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enough, and are calling on employers to raise the profile of working carers, and make it easier for them to get support. Katherine Wilson, head of Employers for Carers, a group of employers committed to working carers supported by Carers UK, said: “We know that carers benefit hugely from early support and recognition, yet a majority of the UK’s 3 million working carers remain largely ‘hidden in plain sight’ amongst their co-workers. Concerted efforts to start a conversation about caring is valuable to both employees and employers looking to retain top talent and boost productivity.”
www.enablemagazine.co.uk
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21/12/2017 11:47
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21/12/2017 10:28
LIFE
NEW YEAR
NEW YOU
I
n 2018 are you: putting down the mince pies and getting into that outfit you’ve not worn for two years? Being more money savvy – do you really need the latest iPhone? Or are you maybe thinking about taking up a new sport? The new year is like starting a new notebook, and there is a blank page waiting on all your goals for the year ahead. You might think that living with a learning, physical or sensory disability means your resolutions are limited – this is not the case.
The clock has struck midnight, the bells have chimed, the fireworks have exploded – now, it’s time to make 2018 the year you achieve all your goals, big and small
GOAL ONE LOSE WEIGHT If you’re anything like us, dear Enable readers, then there’s a good chance you over-indulged during the festive season. A full packet of mince pies topped with double cream, followed by a handful of Roses chocolates – all for Christmas Day breakfast? Don’t mind if we do. As we roll into 2018, it’s safe to say the jeans are feeling a little tighter now. One of the most common resolutions, and a sentence we’ve all muttered at one point or another: “The diet starts tomorrow.” Ditch the diet but still lose weight with small yet effective steps to a healthier lifestyle. One success story comes from Natasha Bunby, who lost 12 stone, and kept it off, thanks to help from Slimming World. The leading weight loss organisation in the UK, Slimming World has been helping men and women lose weight and keep it off since 1969. The main concept behind Slimming World is putting you back in control of what you eat – without cutting down on portions. This is not a diet, this is a lifestyle change – and it’s a programme for everyone, regardless of ability. Diagnosed with multiple sclerosis in 2010, Natasha had tried various diets, but it was one experience that led her to lose weight
for good. “When I was diagnosed with multiple sclerosis, my mum was pushing me in a wheelchair, and the wheelchair got stuck on a verge. Due to my mobility, I wasn’t able to get out of the chair and get the wheelchair out of the bush. My children were with me, and that incident was the catalyst,” explains Natasha. “It was also understanding that I have an illness and I can’t change that; it’s part of who I am but there are things I can do to help my health. My weight was something that I needed to change, for my health and myself.” Natasha before
Natasha after www.enablemagazine.co.uk
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LIFE
GOAL two
GET MOVING
Natasha has kept her weight off for nearly six years, despite her MS, and credits the Slimming World programme for her success. Part of losing weight is exercise, but with limited mobility this can be daunting. “People who are less able need to be proud of the smaller achievements that we can do that use up all the energy that your average person doesn’t use,” says Natasha. After several MS relapses, she became a full-time wheelchair user in February 2017, but maintains a healthy weight despite her limited mobility. “I was wondering what was going to happen if I was taking in food but I’m not burning it off? I am living proof that it works. I have kept it off. There are lots of reasons why people would think they wouldn’t lose weight – there are lots of people out there like me who have done Slimming World and managed to keep the weight off,” adds Natasha. There is no need to worry about weigh ins if you’re a wheelchair user, and exercise won’t be daunting thanks to the Full Body Magic booklet, explaining that everyone exercises differently, and sensory disabilities are covered too. If you’re keen to find a new activity, whatever your ability, check out the Parasport website at www.parasport. org.uk – here, you’ll see a handy tool which helps you find a sport that’s accessible to you, and which has clubs in your local area. So you get fit and make friends at the same time – that’s two resolutions in one!
GOAL three SAVING From getting physically fit to getting your finances in shape – this is another big goal that many can get on board with. Controlling your cash means you can feel confident in your spending, save more and enjoy life’s little treats. Whether you’re saving up for next Christmas or looking to go on holiday, The Money Charity is on hand to help you better understand your money. Providing workshops on a variety of monetary issues, from debt to saving to pensions, getting your finances under control is one less thing to worry about. “We give tips and guidance where possible and also hand out resources to help people budget and become more informed about their financial options,” says policy and communications officer Luke Humphrey. Organisations like the Money Charity can offer lots of useful information to help you become more aware of your
i
FIND OUT MORE
Slimming World
www.slimmingworld.co.uk 0344 897 8000
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spending. Luke adds: “If you just put away small amounts of money every week or month at the start of the year, when Christmas comes around, you can rely on those savings made from your budget for any big Christmas costs, such as travel, holidays and accommodation, decorations, food, and, of course, presents.” By changing your spending habits, and getting into the habit of saving, you’ll be amazed by the difference. Advice is available online and through the Money Charity app, set to launch in a few months’ time, meaning managing your money is only a click away. Wave goodbye to the year gone by, and embrace the opportunities and adventures waiting in 2018. Whatever your resolutions, there are groups offering support and success stories to encourage you to reach your goal. This is going to be your year.
The Money Charity
www.themoneycharity.org.uk 020 7062 8933
Parasport
www.parasport.org.uk
www.enablemagazine.co.uk
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21/12/2017 16:30
ADVERTISING FEATURE
NEW SUPPORT FOR
Reablement practitioners A
new system has been launched to provide support to practitioners working in reablement. The Daily Living System, from movement monitoring experts Just Checking, has been developed specifically for reablement and has been tested by OTs and other professionals working in the sector. As an individual goes about their daily routine, the Daily Living System creates a clear summary of activity that can be viewed securely online. This information provides unbiased evidence of an individual’s progress during reablement, supporting goal-based assessments. It can create efficiencies for practitioners and help to ensure that individuals get the support they need. The Daily Living System comprises of a unique combination of small movement and activity sensors that are positioned around the home on doors, skirting boards and objects such as the kettle, fridge, microwave and taps. The system’s unique sequencing tool means that the sensors are able to detect when an individual successfully completes a task that has been set as part of their reablement, such a making a hot drink or having a shower. Every time the task is successfully undertaken it is shown on an easy-to-read, secure online chart. The Daily Living System also gives practitioners evidence of an individual’s movement around the home, and will show, for example, if they had a disturbed night or when they visited the bathroom. It provides OTs with an assessment tool that runs continually and helps identify where support is required. There are no cameras or microphones, just discreet wireless movement door and activity sensors with a plug-in hub. The sensors are simple to attach around the property and the hub only needs an electrical supply. No internet connection is required as the system operates with a roaming mobile sim. The Daily Living System supports
the principle of safeguarding against Deprivation of Liberty (and freedom) Safeguards (DoLS) outlined in the Mental Capacity Act (2005). Occupational therapists taking part in testing found that the Daily Living System provided remote visibility of individuals’ progress against their specific objectives, with evidence that an objective had been achieved and over what time period, without having to obtain information from other care staff. This visibility provided them with evidence to support their care recommendations. Just Checking movement monitoring systems are already used successfully by 80% of local authorities to assess people with dementia who are living alone. The new Daily Living System builds on this expertise to deliver an assessment tool that is specifically designed to support the reablement process.
Use of the Daily Living System also includes access to the Just Checking customer support team, who are available to assist practitioners with the placement of sensors and reading of the charts, if necessary.
For further information on the Daily Living System visit www.justchecking.co.uk/ professionals/reablement, or contact 01564 785 100 or support@justchecking.co.uk
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21/12/2017 17:06
JONNIE PEACOCK
From
Gold medals to the Glitter ball
In the autumn, Paralympic hero Jonnie Peacock’s career took a quite unexpected turn, when he traded in his running blade for dance shoes and hit the Strictly Come Dancing ballroom. Enable editor Lindsay Cochrane caught up with the Paralympic champion to find out just how much the reality show has changed his life – and what the future holds
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S
itting crouched in the starting blocks at the London 2012 Paralympic Games and standing in the spotlight of London’s Elstree Studios decked out in sequins are two very different situations – but equally as terrifying, as sprinter Jonnie Peacock found out last year. “They’re very different!” agrees Jonnie, with a laugh. “In terms of sheer nerves, Strictly is probably scarier though. The first dance particularly, because you just don’t feel prepared more than anything.” Jiving, quickstepping and waltzing in front of millions of viewers as part of the 15th series of Strictly was a total departure from everything the 24-year-old Cambridge native has ever done – but an experience he won’t forget, despite finishing eighth overall. “I was a little bit apprehensive about my ability to start with – quite rightly so!” he says. “But I definitely had a lot of fun. I knew it would be fun, but I didn’t know how much fun. It was an amazing opportunity.”
Got the moves
Despite a protruding posterior, which Jonnie attributes to balance issues due to his amputation, his moves on the dance floor captured the nation’s attention – especially in week two, when he took to the floor for a high-energy jive to Chuck Berry’s Johnny B. Goode. “The jive was so much fun,” he says. “Having that much fun on the floor – it was a dance you could throw yourself into. It was the one I got into the most.” But it wasn’t just his kicks and flicks that got the nation talking. For the jive, Jonnie, who was partnered with South African professional dancer Oti Mabuse, ditched his prosthetic in favour of a running blade, the same as the one that he uses on the track. As the first physically disabled contestant to appear on the main Strictly show, it was a real landmark moment in prime time Saturday night TV – and for a young man who’s determined to focus on ability first, he got to show the nation exactly what’s possible. “It was really amazing to be given
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INTERVIEW that opportunity; to be the first disabled person [on the show] is incredible,” he says. “There are many reasons to do it – the fact that it’s a once in a lifetime opportunity is a huge thing. But I also wanted to go out there and be able to show the blade one week, and hopefully show kids how cool that can be – not just disabled kids. I wanted to normalise it. “And I wanted to change people’s perceptions of what disabled people could and couldn’t do too; show people that you shouldn’t judge straight away, and let the person show you what they’re capable of. I think we managed to do a bit of that.”
PICS: ©VICTORIA JONES/PA WIRE; © EQ NUTRITION; © BBC/GUY LEVY; © BBC/KIERON MCCARRON
No holding back
Jonnie’s right leg was amputated just below the knee when he was five years old after contracting meningitis. Having been active before his amputation, he wasn’t for letting it hold him back – and so he discovered athletics. He ran his first international race in the T44 100m sprint at the May 2012 Paralympic World Cup in Manchester. Just a month later, he set a new world record in amputee sprinting at the United States Paralympic track and field trials, before going on to compete in the 100m at the London 2012 Summer Paralympics – where he ran his way to a gold medal in just 10.90 seconds. His triumphant sprint, aged just 19, won him a place in the hearts of the nation, and he’s been a familiar face ever since. Scooping gold at every major athletics event since, including Rio in 2016, being awarded an MBE in 2013 for his services to athletics, coming third in BBC Sports Personality of the Year in 2017 – sport has brought so much into Jonnie’s life, and he’s now working hard to encourage the public to get active too. Last year, he became the face of the Superhero Series Superhero Tri and Winter Wonderwheels events, encouraging people of all abilities to get together and get active, as well as playing a role in Sainsbury’s Active Kids campaign. “There are so many ways to be active now,” he says. “It doesn’t have to be football, sprinting, rugby – it can be anything you want. It’s about finding something that you enjoy. There are literally endless opportunities in the world that we live in today. I think it’s all about finding something, and trying something.”
Golden glow
For Jonnie, Strictly was another way of showing the public that disability doesn’t have to make keeping active impossible –
I wanted to go out there and be able to show the blade one week, and hopefully show kids how cool that can be – not just disabled kids
dance is a great way of keeping fit, and a lot of fun too. But there was one element of the competition which really grabbed his attention. “The spray tans,” he says, with a laugh. “Seeing what I look like normal basically – I’m rather pale! It was good. All of it was good fun, to be honest.” It’s going to be hard to match a year which brought him a gold medal at the London 2017 World Para Athletics Championships as well as a golden complexion – albeit one that washed off. As a result, Jonnie’s taking a more laidback approach to 2018. “I’m just waiting to see what happens,” he says of the new year. “My training is going to be taking the back burner for a year – that’ll be two or three days a week as opposed to six, just to let other things
take priority for a year. We’ll see what comes up – hopefully I can have a bit of fun!” And with that infectiously positive personality and can-do attitude? We’ve got no doubt that there will be plenty of that in store for Jonnie. Jonnie Peacock is fuelled by EQ Nutrition Informed Sport, tested and quality assured – eqnutrition.com.
See Jonnie in action on the dance floor as part of the Strictly Come Dancing Live Tour. Get your tickets at www.ticketmaster.co.uk.
www.enablemagazine.co.uk
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21/12/2017 10:27
CARERS
The
Golden Years of
Behind closed doors, millions of people are caring for a relative or loved one. Of these carers, 2 million are over the age of 65, often with their own health needs. Caring is a full-time position with a lot of responsibility – but what does it really take to be an older carer?
www.enablemagazine.co.uk
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21/12/2017 11:49
CARERS
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e all grow old sooner or later. Some of us might be fit and fighting at 90, or in need of additional support at 60. When it comes to caring, we all want to do the best for our friends and family, but as an older carer, this responsibility can come with extra pressure. Despite support and assistance from healthcare professionals, social work and charities, caring as an older person can be incredibly challenging. HELPING HAND Margaret Dangoor started caring for her husband Eddie when he began to show signs of dementia, like coming home from walks late, getting on the wrong bus, and asking Margaret to write down notes because he couldn’t remember certain dates and times. For 10 years, Margaret has cared for Eddie and watched his gradual decline to complete dependency – this has been a learning curve. “When you come to caring as an older person, it’s not like you’ve been doing it all your life. You’re suddenly finding that you’re perhaps not even well yourself. A lot of carers are vulnerable themselves and disabled, struggling to look after their partner, and it’s so fresh to them,” explains Margaret. Aged 78, Margaret has had some experience of care, having volunteered with various charities for over 25 years – many people do not have this advantage. Caring for someone, especially as an elderly person, and possibly with your own additional needs, is a daunting prospect. Dementia is a progressive condition that can cause severe mood swings, confusion and moments of feeling disturbed – all of this can be difficult to come to terms with. “When someone develops dementia, it’s not something the average person knows much about,” says Margaret. “Even if you’re quite well informed, you really
A lot of carers are vulnerable themselves and disabled, struggling to look after their partner, and it’s so fresh to them
generation of older carers in the UK, providing levels of care they may never have had to deliver before.
FUNDING Looking after a loved one is not only emotionally taxing, it can be costly. Statistics from Carers UK show that carers save the economy £132 billion per year by caring independently, saving on average £19,336 per carer. Putting that into perspective highlights the financial cost that goes into caring – something many Margaret Dangoor, carer people would not consider. Being an active member of the don’t know how or where to start. To a community and voice for older carers, certain extent, you shy away from it, and Margaret regularly attends meetings and you want to continue your normal life. It conferences to raise awareness about is often when you’re in a crisis that you being an older carer. For this luxury, she want help and the first thing that you do has had to pay extra for external carers to is go to your GP.” look after Eddie. Margaret explains: “My situation is as EMOTIONAL good as it could be, but it has taken a lot From the point of diagnosis, or before, of effort and a lot of money. I have spent the emotional pressure of being an older over £110,000 on my husband’s care over carer can be troublesome. There is also the years. I was paying £3,000 a month no denying that the older generation are before he went onto continued care, fiercely independent – for some, asking which is NHS funded, but I still have to for help is not an option. pay extra, because they don’t cover me if I Caring can be a huge responsibility, go to meetings.” and one that is new to many people – Attendance at a specialist care centre and older carers may have their own for her husband costs Margaret £70 per additional needs. Margaret helps organise day, but the benefit for Eddie makes a dementia care group for fellow older the cost a necessity. The financial cost carers, and has seen the pressure applied of caring is just one of the additional to some attendees. stresses that comes with the role. “They come into the group, and they’ve Margaret explains: “You’re on this got rheumatoid arthritis themselves and journey with different symptoms at they’re looking after their partner with different times, then at the same time dementia. You do it because it comes keeping your home going, paying bills on gradually, like old age does, and you which you might not be used to doing in keep going. A lot of people are living the past – it is the issue of taking on all the in very difficult situations, responsibility plus the significant being old and frail and not caring responsibility. really wanting any help,” “We’re all going to get older, Are you an explains Margaret. it’s a passage through life. older carer looking for There is a hidden We all have demands at additional support? different stages. Caring for ourselves, caring for Carers UK can help. Visit our grandchildren, caring www.carersuk.org or for our partners, and it call 0808 808 7777. needs to be recognised that, actually, we’re doing a great job behind those closed doors. We’re not a burden.” Everyone is dedicated to bringing the best of care to their loved ones, but this care comes with many additional responsibilities. Emotionally, financially and physically, being an older carer is a full-time role – and this is a role many of us may find ourselves in.
www.enablemagazine.co.uk
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21/12/2017 11:50
Do you employ your own PAs and carers?
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21/12/2017 16:17
SUPPORTED LIVING
PATHWAYS TO INDEPENDENCE There’s much more to care these days than domiciliary support and residential homes – we find out about one service that offers the best of both, and helps individuals along the path to independence
L
iving independently can, for some, feel like an impossible dream. But there are services available nationwide which are helping people to live safely and comfortably, while teaching them the skills they need to perhaps move on to increased independence. Supported living schemes can take a number of forms, but there are usually two constants – they provide accommodation and support. It might involve a room with an en suite and communal living, an individual flat with a communal area, or a completely independent flat with floating support. Service users will have personalised care plans, ranging from an hour of support a day to full-time care, depending on their needs, as well as individual goals and targets to work towards. DEVELOPING SKILLS “Supported housing is not normally intended as a permanent solution – it’s one that provides people with the skills that they need to live in independent accommodation,” explains Sarah ClarkeKuehn, operations director at Sanctuary Supported Living. “For some individuals with long-term conditions, however, it can be the long-term solution. And what we then do is focus on maintaining the skills that they have. We are very outcomedriven – but sometimes it’s about maintaining those outcomes rather than expanding on them.” That could involve helping a person to budget, teaching them to cook for themselves, supporting them to access training or education opportunities, or even helping them to get into employment – whatever is important to the service user, the provider will work to help make it happen. Traditionally, supported living was targeted more towards individuals with
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lower level support needs, but nowadays, services are available for people with a huge variety of different needs. Ranging from mental health to learning disability, physical disability to long-term medical issues, most services are able to flex and adapt to the individual. It’s becoming an increasingly popular option for people who perhaps need more support than a few care visits at home day-to-day, but aren’t quite ready for a residential care home – it offers a bit more freedom and independence. Like Sarah points out, for some service users, support can taper off gradually, even preparing them to live completely independently in the future.
usually funded through personal care budgets, via the council or can be paid for from your own money – it all depends on your financial circumstances. If you think it’s a service that could work for you, contact your local authority for an assessment of need, and ask how you SUCCESSFUL SUPPORT might proceed from there. So what are the hallmarks of a “By providing those successful supported living personalised care and tailored arrangement? With so many support packages for providers on offer, it’s wise individual needs, every to know what you want With good service user is able to when you start making supported living, get out of supported enquiries. living the skills and you see personalised “It’s all about personexperience that they care and support, centred planning,” need to live their life tailored to their Sarah says. “The client as independently as has to be at the heart needs possible, if they are able,” of everything we do. Sarah adds. “Supported With good supported living living gives residents a chance schemes, you see personalised to learn new skills, overcome care and support, tailored to their personal obstacles, needs. A good supported living service build new relationships, and build a will support clients to develop the service future for themselves, providing that as well. We need to help develop the pathway to independence.” service, shape the events and activities, policies and procedures, so they can add some real value. In some cases, we’ve i FIND OUT MORE had residents sit in on interview panels, interviewing new staff at their scheme.” Find out more about Sanctuary Most supported living schemes take Supported Living’s services at referrals from local authorities, social www.sanctuary-supportedservices or other relevant organisations, living.co.uk but some do take self-referrals. They are
www.enablemagazine.co.uk
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21/12/2017 12:08
CARE
FLYING SOLO For Greenwich man Anthony Jordan, moving to a supported living scheme has had an incredibly positive impact. Having lived under the care of his mother for more than 50 years, Anthony is now living independently for the first time in his life, following a spell in supported housing. Anthony, 59, was referred to 24hour supported accommodation, designed for people with a high level of need, when his mother passed away in 2009. Through the service, he started to learn lots of daily living skills, before being referred to Sanctuary’s Burnt Ash Hill development, a supported living scheme which is designed for people with mental health needs, and prepares them for living in a place of their own. With the support of staff, Anthony, who has autism and schizophrenia, grew in confidence when it came to everyday tasks after drawing up a personalised plan. He had a number of goals,
such as learning to cook, clean and budget, as well as getting used to socialising with residents and other people. Anthony said: “Since I moved in, I’ve had great help from the staff. “I was definitely less sure of myself when I first arrived, but they’ve really helped me to build my confidence and get used to taking care of myself.” As of October last year, Anthony is now living on his own for the first time in his life. SSL project worker Ronald Thomas, who supported Anthony several hours a week, said: “Since coming here, Anthony has made great progress and started to take the lead a lot more in areas like managing his money and maintaining his property, and it seemed like the time had come for him to move to a place of his own. “He’s done fantastically well after making such a dramatic change in circumstances and we wish him every success for the future.”
They’ve really helped me to build my confidence and get used to taking care of myself
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21/12/2017 12:08
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MENTAL HEALTH
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We provide specialist services across England for people with physical and learning disabilities, acquired brain injuries, mental health needs and those who have experienced homelessness. We help people to live as independently as possible and lead fulfilling lives, whether through supported housing, residential care or floating support. Many services are registered with the CQC to provide personal care and support. 0330 1233 247 @SancSL www.sanctuary-supported-living.co.uk Sanctuary Supported Living is a trading name of Sanctuary Housing Association and Sanctuary Home Care Limited, both exempt charities.
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PATHWAYS TO
INDEPENDENCE
21/12/2017 10:38
VOICES
TIM RUSHBY-SMITH
Community service? What does it really mean to be part of a community? And can we really say all disabled people are part of one? Author and Enable columnist Tim Rushby-Smith takes a look at the positives and negatives of the term
P
laying in a wheelchair basketball tournament inevitably involves a certain amount of downtime between games, which makes for some interesting people-watching. At a recent tournament, I cast my eye over the players, officials, supporters and helpers and asked myself: “Are we a community?” Among us there were numerous nationalities and ethnicities, both male and female, with the youngest player around ten, and the oldest in his eighties. And we were all there for the same reason: to pursue our love of wheelchair basketball. So yes, there IS a ‘wheelchair basketball community’. SURPRISE But people looking in from the outside are often surprised by this community, as it doesn’t necessarily conform to their
What we have in common is that we don’t conform to the archetype of ‘normal’
preconceptions. For some, this is because they hadn’t considered that some players have disabilities that allow them to walk ‘normally’, but even for those who have worked that one out already, we have an ace up our sleeve: Not everyone who plays wheelchair basketball has a disability. (I should add a caveat: not at the level I play at. The elite level is a different matter) Some have come to the sport when they were less mobile, others through a relative or friend. While they are part of this community, they don’t conform to preconceptions. And that’s the problem with being perceived as a community – there’s a big difference between choosing a community and having one imposed upon you. Whenever there is a terrorist attack anywhere in the world, there are
references to ‘the Muslim community’. This might include people from just about every country, be they Shia, Sunni or Kharijite, orthodox, liberal or secular. This is an example of when the term ‘community’ becomes a cipher for ‘you’re not really part of “our community”’. There may be other times when people choose to identify as a Muslim community, when the association is not intended to have negative connotations. DIVERSITY The same can sometimes apply to the disability community. I know we exist – I write for a magazine aimed at us. But there is a huge diversity of conditions and experience represented in this community, and I sometimes bristle when the label is being attached to me by someone on the outside, attempting to slot us all into their preconceptions, in order to identify us as ‘other’. At the same time, there have been occasions too numerous to count where I have enjoyed the support of others, who better understand the challenges I face because of their own experiences. What we have in common is that we don’t conform to the archetype of what constitutes as ‘normal’, even though such a model doesn’t exist in the real world. This raises a question: if the rest of society were structured to enable equal participation for us all, if ‘normal’ no longer existed, would we still be a community?
Looking Up by Tim Rushby-Smith is published by Virgin Books
www.enablemagazine.co.uk
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21/12/2017 10:40
SPOTLIGHT
THE PROBLEM WITH
Universal Since its roll-out began in 2013, Universal Credit has been plagued with problems. So what’s going wrong with the benefit, and how has it been impacting on disabled people? We’ve been finding out
W
hen the government announced the new Universal Credit system in 2010, it was billed as a simpler approach to welfare benefits. Gone were the multiple application forms and different payment dates – UC was going to roll it all into one, meaning fewer forms, more order and less confusion for claimants. As is often the way, things haven’t quite gone according to plan. The benefit has been rolling out across the UK gradually since 2013, and as time has gone on, a number of glitches have appeared in the system – and problems which could have a devastating effect on individuals’ financial situations. On the surface, Universal Credit should be a good thing. It streamlines the benefit system. It’s in the process of replacing earnings replacement means-tested benefits and tax credits, and is open to both disabled and nondisabled people, both in and out of work.
www.enablemagazine.co.uk
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SPOTLIGHT REALITY The old benefits being replaced are Income Support, income-based Jobseeker’s Allowance, income-based Employment and Support Allowance, Housing Benefit, Child Tax Credit and Working Tax Credit. You will only receive Universal Credit if you meet the means test, and there are certain rules that apply. Jobseeker claimants will still need to sign on, and claimants who can’t work because of ill health or a disability will have to undergo a Work Capability Assessment, as under ESA. While it seems straightforward at first glance, the reality has been quite different. “There are a number of issues which are common to disabled people as well as non-disabled people,” explains Minesh Patel, policy and campaigns manager at disability charity Scope. “We regularly hear from disabled people that the process of applying for Universal Credit and navigating the system is very confusing. There’s often a lack of awareness of the different types of support that are available, such as advance payments or different payment structures for receiving the benefit. “There are some issues too around how somebody accesses the payment, in the sense that the whole process is moving to be digitalised,” says Minesh.” We know that there are many disabled people who either don’t have the skills to use the internet, or are unable to do so if websites are inaccessible. There are also challenges around the Work Capability Assessment which assesses whether somebody is fit to work.” CHALLENGING The switch to UC has proven to be very challenging for some people. Initially, from application to receiving your first payment was said to take five weeks, plus a one-week waiting period, as it is paid monthly in arrears. In the Budget, it was announced that the waiting period would be removed, taking the wait down to 35 days – but this is still too long. “Disabled people are more than twice as likely to be unemployed, so disabled people are spending longer out of work,” Minesh explains. “If you think about the costs when you’re out of work, whether that’s your daily living costs, paying for food, paying your bills, paying for transport – the longer you’re out of work, the more you’re going to feel the impact of that wait.” UC was supposed to be live UK-wide by 2017, but it has been estimated that
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the system is at least five years behind the original schedule. In August of last year, however, 590,000 people were receiving UC in England and Wales, 39% of whom were in employment. By 2022, it’s estimated that more than 7 million households will be in receipt of UC. And one of the biggest changes with UC is in terms of how the payment is made. Under the previous system, claimants were used to receiving money at various different times, and Housing Benefit went straight to landlords. Under UC, you get one monthly payment – and it’s down to you to make sure your rent is paid. There’s a call for the roll-out to be put on hold while one major issue is addressed – that of rent arrears. An article in the Observer from September last year revealed that three councils whose tenants had already moved onto Univeral Credit have built up £8 million in rent arrears, as people struggle to manage a monthly budget. SUPPORT But, as Minesh pointed out, there is support available. Advance payments to tide people over during the application processing period are available as a loan, which must be paid back – in the most recent Budget, it was announced that claimants would now have 12 months to pay this back rather than the previous six. Alternative payment plans are also available in special circumstances, so you could opt for fortnightly payments rather than monthly if it’d help you manage your money more easily. However, these aren’t terribly well publicised.
In Scotland, UC is already available as a fortnightly payment, and the Housing Benefit component is going straight to landlords to combat the issue of rent arrears. This is a positive step for claimants north of the border – but problems still exist in England and Wales. Scope are calling for changes to be made to the benefit, in order to make the so-called simpler system exactly that, and more accessible to claimants. “Operationally, we’d like to see better awareness of things such as advance payments and alternative payment structures, and to tackle the difficulties disabled people may face in engaging digitally,” Minesh says. “In terms of the design of the benefit itself, one of the main things we want to see is long-term reform of the WCA as part of Universal Credit. And we’d like to see better recording and monitoring of the experiences of disabled people who are using UC too, to understand the challenges and where changes are needed.”
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USEFUL CONTACTS
Disability Rights UK
www.disabilityrightsuk.org 020 7250 8181
Citizens Advice
www.citizensadvice.org.uk
Money Advice Service
www.moneyadviceservice.org.uk 0800 138 7777
If you need advice and information on Universal Credit, you can call Scope’s free helpline on 0808 800 3333, or visit the website at www.scope.org.uk
www.enablemagazine.co.uk
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21/12/2017 11:51
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21/12/2017 16:17
We exist to provide a lifetime of support to soldiers, veterans and their immediate families. We support up to 100 front line charities and specialist organisations – such as SSAFA, Combat Stress, Royal Star & Garter and the NSPCC – to deliver help on our behalf. We also make direct grants to some 5,000 individuals, ranging in age from 6 months to 105 years old. Through our network of support, our work touches the lives of around 80,000 people worldwide, every year. Donate or get involved in fundraising at www.soldierscharity.org facebook.com/soldierscharity
instagram.com/soldierscharity
@soldierscharity ABF The Soldiers’ Charity is a registered charity in England and Wales (1146420) and Scotland (039189). Registered Office: Mountbarrow House, 12 Elizabeth Street, London SW1W 9RB, Tel: 020 7901 8900, Email: fundraising@soldierscharity.org
Gary Jamieson, former Scots Guardsman, injured in Afghanistan in 2010, Charity Beneficiary. © Malcolm Cochrane
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21/12/2017 10:24
SPOTLIGHT
SOCIAL CARE AT BREAKING POINT
More than 3,000 younger people with MS living in care homes for older people New research from the MS Society has found that thousands of younger people affected by the condition in England are not receiving sufficient support – and the charity is calling for change. We found out more about the crisis in social care, and the impact it’s having on thousands of lives
B
eing diagnosed with a progressive condition like multiple sclerosis can be a scary journey. The future is often uncertain, and each day can be totally different. It’s perhaps even scarier now than it’s ever been, due to cuts to funding and removal of services in social care. A report published by the MS Society in November, following Freedom of Information requests to every local authority in England, found that a shocking 3,300 working age people with MS are stuck in care homes designed for older people – meaning that, scaled up, as many as one in seven younger adults who are in residential care could be in homes which were never designed for their needs. “What we’re hearing from people is that it’s either because of a lack of any alternative local provision, or services for young people are just too far away,” explains Genevieve Edwards, director of external affairs at the MS Society. “The issue is that you’re likely to be diagnosed with MS when you’re in your 20s and 30s. You’ll live with a wide range of symptoms for many decades of your life. In an older people’s home, you could be in an environment where it’s not just people having a different frame of reference to you, but they could have other complex
conditions like dementia. It could make it a very isolating place.” IMPACT Receiving insufficient care can have a detrimental impact on a person – physically and mentally. Wesley Murch’s mum Julie was diagnosed with MS in the late 90s. When she was in her late 50s, she was moved into a care home – but, her son says, it wasn’t the right place for her. “Before she went into care, Mum was outgoing, lively, fun,” Wesley explains. “Once or twice a week, she’d be out with my dad or friends, down the bingo. If my friends came to the house and I wasn’t there, I’d quite often come home to find them sitting having a cup of tea with her.” Julie’s social worker took the decision that a care home was the best place for her – in a facility for people with neurological conditions, where most residents had experienced serious brain trauma. The home itself was 18 miles away from her family, making visiting difficult for Wesley and his sister. “She was struggling with severe physical symptoms of MS, but not so much any of the neurological symptoms,” Wesley explains. “There wasn’t a single person who could sit and talk to Mum, she
www.enablemagazine.co.uk
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SPOTLIGHT
In an older people’s home, you could be living with people who could have complex conditions like dementia. It could make it a very isolating place
couldn’t make friends with anybody. There was no sort of interaction for her.” DECLINE The family decided to move Julie to a facility closer to home, but this one was one for older people. Julie had more people to talk to and interact with, but the service was not designed for her. Julie passed away late last year and, Wesley says, he’s in no doubt that her care set-up played a part in her decline. “She went downhill pretty rapidly, physically and mentally, from there,” Wesley says. “She was citing the fact that multiple sclerosis was killing her motivation to do anything anyway – but if she was motivated to do something, there was nothing to do, or there was no one for her to do things with. Mum’s decline became very rapid in comparison to what it had been the previous 12 months.” More than 280,000 working age disabled people rely on social care support. And yet, many of the services on offer are very much geared towards older people. This means that thousands of younger people are not getting access to the support that they so desperately need
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to live their lives – to go to work, tidy their house, socialise or, in some cases, even get up and dressed in the morning. “Demand for support has increased by over a fifth since 2013 for people with MS,” says Genevieve. “Almost a third of people with MS with the highest needs – they need help getting washed and dressed – aren’t getting the support that they need. And it’s also the case that young people with MS are much less likely to get the support they need than older people.” BROKEN The MS Society say that this is another indicator of a broken social care system, with people in need missing out on the support that they need to live the life that they want. And it’s all a matter of funding. “We have got a real gap in funding – budgets have decreased by more than £6 billion in real terms,” explains Genevieve. “Estimates are that, by the end of this decade, there’s going to be a £2.5 billion funding gap in social care. The government did announce in the Budget in March that there would be a £2 billion funding boost over two years, but we really need that money to
materialise and we really need a longterm funding settlement, because we can’t keep putting a sticking plaster on it.” The reality is that if people aren’t getting support, more and more are going to suffer, and not just people with MS. For younger disabled people, good social care support is the key to independence. It can enable them to go to work, to get out and socialise, to pursue hobbies, form relationships, and thrive. Without it? Life can be very difficult, very lonely and their physical and mental health can decline. “I think it’s really important that people with MS have access to care that gives them good quality of life, and that’s appropriate for their needs,” Genevieve adds. “It is just one example of how the social care system is failing disabled people and their carers. We need that funding sooner rather than later.”
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FIND OUT MORE
For advice, information and support with MS, contact the MS Society’s free helpline on 0808 800 8000, or visit the website at www.mssociety.org.uk
www.enablemagazine.co.uk
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Established 1982
DOUGLAS BADER FOUNDATION
Helping you on your way Calvert Trust Exmoor enables people of any ability to experience challenging and enjoyable activity holidays. At our fully accessible residential centre on the edge of Exmoor National Park all activities are specifically designed and equipped to cater for everyone. Stay with us for a few days, a week, or come just for the day; however long you are here you will discover It's What You CAN Do That Counts!
For those affected by limb loss or are otherwise physically disabled
BADER BRAVES BADER GRANTS TEAM BADER BADER INFORMATION douglasbaderfoundation.com
01598 763221
exmoor@calvert-trust.org.uk
Registered Charity Number 800435
Challenging Disability through Outdoor Adventure The Calvert Trust has been delivering outdoor adventure breaks for adults and children with disabilities in the beautiful surroundings of the Lake District National Park since 1976. Whether you are looking for new experiences and to meet new people, or just active holiday fun with friends and family, we have something amazing to offer you. To find out more, including dates and availability, call us on 017687 72255
enquiries@lakedistrict.calvert-trust.org.uk www.calvert-trust.org.uk/lake-district/ introduction Reg Charity No. 270923
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CalvertTrustLakes
@CalvertLakes
21/12/2017 17:20
The journey to
PyeongChang The countdown is on for the 2018 Winter Paralympic Games in South Korea. Across the world, hundreds of athletes are tirelessly training to bring home one of the 80 medals on offer. Hurdle number one – qualification. The ParalympicsGB hopefuls are supercharged for the Games – we caught up with a few of them to talk winter sport
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he Winter Paralympics are relatively new to the world of disability sport. After World War II, many injured veterans returned to the slopes after acquiring life-changing injuries in the battle field. The surge in interest in winter parasport saw the first Winter Paralympic Games take place in Ornskoldsvik, Sweden, in 1976. Since then, winter sport has snowballed in popularity, and ParalympicsGB are hoping to build on their success in 2018.
Alpine skiing
In 2014, the Sochi Winter Paralympic Games were attended by 547 athletes from 45 nations – it was a roaring success, and PyeongChang has big (snow) shoes to fill. One man looking to make his mark at this year’s Winter Games is alpine skier Chris Lloyd. After a car crash left Chris paralysed, it was a blow to be told he would never pursue his passion for skiing again. This wasn’t an option for Chris, who took his medical advice and turned it on its head – two years later, he entered his first international race. Many hours spent in training, combined with sheer determination, means that Chris is now in contention to be selected for the Games in 2018. “Once the doctor told me I would never ski again, I was motivated to get back on the snow. Once I actually got back on the snow, I thought it was time to work my hardest and get racing and competing again,” says Chris, who now only has 40%
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With team announcements coming soon, we can’t wait to find out who will be representing Britain out on the slopes. With British contenders in five of the six sports, we’ve got a good feeling about this year’s Winter Games. The athletes are fastening their ski boots, securing their helmets and getting mentally and physically prepared for what could be the biggest challenge of their sporting career – the slopes of PyeongChang are ready and waiting.
power in his right leg and 50% power in his left. Despite being told he would never ski again, Chris knew a goal would see him back on his feet. Chris explains: “The best part for me would be to achieve a goal that I’ve set myself, which seemed very unrealistic at the time. It is obviously an honour to represent your country in that situation. I would be proud to be able to be a part of the team, and going to PyeongChang would be a really proud moment.” The last Paralympic Winter Games in Sochi 2014 saw Great Britain bring home six medals, and Chris was invited along to see all the action unfold. “It was a big learning curve, going to Sochi. We were on the Paralympic Inspiration Programme, where people who were expected to meet the selection criteria in 2018 for South Korea could see how different the environment was and understand how to prepare for it. Everything is on such a large scale;
everything is totally different to a normal race. It’s a buzz.” Qualification for this year’s Games would be a fantastic achievement for Chris, and his next stop is placing in either the top ten or five. From paralysis and being told he’d never ski again to bracing himself for the slopes of the Winter Paralympics, Chris is proof of what hard work can achieve.
www.enablemagazine.co.uk
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SPORT
The best part for me would be to achieve a goal that I’ve set myself, which seemed very unrealistic at the time Chris Lloyd, Alpine Skiing
Snowboarding Having competed in the X Games and won World Cup races, it is an exciting time for Ben and snowboarding for many reasons. Snowboarding debuted during Sochi 2014, and Great Britain are yet to showcase the talent we have at home. Could Ben Moore be the man to bring home a snowboarding medal? Ben’s sheer love, passion and dedication to snowboarding comes through when he talks, and his skill shines on the slopes. His favourite part of training? “Snowboarding, all day long. Preferably free riding and on a powder day.” There are high hopes for Ben on the slopes this year – and he’s crossing everything that he makes the final cut.
PIC: © GAVIN CRAWFORD
Hoping to hit the slopes as one of the first para-snowboarders for Great Britain, Ben Moore has had great success in the sport so far. After losing full use of his arm in a motorcycling accident, Ben used his skills as a skateboarder to go from concrete to snow. The transition was filled with commitment – after all, snowboarding is harder than it looks, but his determination has paid off, and being selected would be a dream come true. Ben says: “I’ve spent the last couple of years training, and hoping to get selected and be part of this. It is quite literally a dream. It would be very overwhelming; I struggle to absorb what I’ve done so far. The next step would be mind-blowing.”
www.enablemagazine.co.uk
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PIC: © GRAEME HART / PERTHSHIRE PICTURE AGENCY
Aileen Neilson became the first female wheelchair curling skip in 2011, and her sporting career has been a journey. “If you show a picture of a rollercoaster, that is my sporting career, because it goes from highs to lows,” says Aileen. From winning a bronze in Sochi 2014 to being relegated before the World Championships in Finland, it certainly has been a ride. Having been a sport for over 10 years, wheelchair curling was added to the Winter Paralympic Games during the Turin Games in 2006, and the ParalympicsGB team have more than made their mark. Despite the difficulties the team have faced, Aileen has said they have learned from their failures and used the experiences to their advantage. Aileen says: “Even in Sochi when we got our bronze medal, we were really heavily defeated by Russia, which meant we weren’t going to have a gold medal and we only had three hours to turn ourselves around and get back on the ice for our bronze medal. Our team is really resilient.” Having a strong team dynamic and working well alongside coach Sheila Swan helps with the tougher times. “Sheila has been a crucial element to our success,” explains Aileen. “She had real faith in us when we were winning or losing.” The wheelchair curling team are set to use competitions in Finland and Russia at the start of 2018 to cement their skills and tactics ahead of selection. Here’s hoping it all pays off, and Aileen makes it.
PIC: © HELP FOR HEROES
Wheelchair Curling
Nordic skiing
Selection is an exciting and integral stage of the Winter Paralympics, and there are two men focused on getting to PyeongChang. Athletes Scott Meenagh and Steve Arnold are both in the running to represent Britain – if they are selected, it will be the first time ParalympicsGB have had a Nordic skier since 1998. Both Scott and Steve come from a military background, and have received support from Help for Heroes on their journey to the Winter Paralympic Games. Scott was first introduced to Nordic skiing, which consists of cross country skiing and biathlon events, after being taken to Sochi as part of the Paralympic Inspiration Programme in 2014. “I was amazed by it; the physicality, the skill, technique, the environment. It looked a lot of fun, like real-life Mario Kart! The fire in my belly was lit,” says former paratrooper Scott, who lost his legs in Afghanistan. After appreciating the skill involved with Nordic skiing, Scott used his support from Help for Heroes to turn his skiing hobby into a Paralympic goal.
I want to look back and feel we’ve truly blazed a trail for others to follow Scott Meenagh, Nordic Skiing
Nordic skiing combines real physical and mental strength together, and truly tests the athletes. Cross country has three events, ranging from the 1km sprint through to 20km – each race requires different tactics, including strength, power, speed and endurance. The biathlon sees athletes balance the demands of undulated ski courses before focusing mentally in the range to shoot five targets at a distance of ten metres. The sport is enthralling, and Scott is hoping to bring his all to the Games if he is selected. “I don’t want to be a victim; I don’t want people to feel sorry for me. I want to achieve and I want to be redefined. I want to be known for other achievements, not for being the guy who lost his legs at work seven years ago,” explains Scott. “Sport has helped me move on with my life. It’s given me more of an identity as a sportsperson, rather than as an ex-soldier. “I feel incredibly lucky to be given the opportunity I have. I feel fit, I feel strong and I have the chance to do something really special with my life… I want to look back and feel we’ve truly blazed a trail for others to follow.” The 2018 Winter Paralympics will begin on Friday 9 March until Sunday 18 March, held in PyeongChang, South Korea. Keep up to date with the ParalympicsGB team selections at www.paralympics.org.uk.
Don’t miss our interviews with more ParalympicsGB athletes over on the Enable website, www.enablemagazine.co.uk 34
www.enablemagazine.co.uk
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COMPETITION
WIN A BREAK AT HOE GRANGE HOLIDAYS Pack your bags – you could be heading off for a break at one of Hoe Grange Holidays’ accessible holiday lodges in the Peak District
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oe Grange Holidays offers four national award-winning, wheelchair accessible, self-catering lodges, set in stunning countryside on a working farm. Close to Ashbourne and Bakewell, it’s the perfect place to unwind with family or friends and explore the wonders of the Derbyshire Peak District. With all the comforts of home and a wide range of specialist equipment, including hoist and profile beds, you can relax in the peaceful surroundings and take time out to watch the wildlife. Sleeping up to four guests each lodge has an accessible wheel-in shower room, as well as a luxurious family bathroom. There is plenty of space, and the lodges are thoughtfully set up for wheelchair users, and guests with visual and hearing impairments. A truly relaxing environment, you can unwind in the log-fired hot tub and barrel sauna, or enjoy an evening cooking your own pizzas in the new outdoor pizza oven. There’s plenty to explore in the surrounding area too – you won’t be short on things to do! And you could be off to enjoy a three or four-night break in one of the lodges with this issue’s competition.
HOW TO ENTER
To be in with a chance of winning this fantastic prize, simply send us your name, email address, daytime telephone number and where you picked up your copy of Enable to: Hoe Grange Holidays Competition, Enable Magazine, DC Publishing Ltd, 198 Bath Street, Glasgow, G2 4HG. Alternatively, you can email your details to: competitions@dcpublishing.co.uk Or enter online at: www.enablemagazine.co.uk/ hoegrange. All entries must be received by 31 January – good luck!
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FIND OUT MORE
Find out more about Hoe Grange Holidays at www.hoegrangeholidays.co.uk, or call 01629 540 262 TERMS AND CONDITIONS: All entries must be received by 31 January 2018. Winner is entitled to a 3 or 4 night midweek break at Hoe Grange Holidays before 25th March 2018 or after 2nd November and before 14th December 2018 for up to four people. Arrival after 3pm and checkout before 10am. Prize is subject to availability. Transport, food, hire of the log-fired hot tub, barrel sauna, pizza oven or off-road wheelchair not included. Booking subject to availability, prize is non-transferable, non-refundable and there is no cash alternative and cannot be sold to another party. One entry per household. The publisher’s decision is final. If you do not wish to be contacted by Hoe Grange Holidays, please write OPT OUT on your entry.
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www.enablemagazine.co.uk
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21/12/2017 16:11
Control your world at the touch of a screen 3.5�
touchscreen
LiNX technology is redefining mobility Find out what LiNX can do for you: www.invacarelinx.com 01656 776222
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21 YEARS OF HAND-BUILT QUALITY • UK manufacturer, established in 1996 • Curve and Horizon Straight stairlifts • Innovative adjustable ERGO chair • Award-winning reconditioned scheme • Space seat for narrow staircases • Fastest lead times in the industry for • a hand-built, custom-fit, curved rail • Outstanding customer service and aftercare
Freephone 08000 355 591 www.platinumstairlifts.com 038_EN_JF18_Platinum.indd 38
21/12/2017 10:30
enable GUIDE
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Everything you need to get planning your next big adventure
HERE COMES THE SUN Get away from it all with a sun-soaked overseas holiday
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INSURANCE EXPLAINED
How to make sure you’re fully covered for your foreign travels
HOME FROM HOME
The hottest destinations worth checking out, right here in Britain
THE BEST OF BRITISH
Some of the UK’s best disability-friendly attractions and days out
www.enablemagazine.co.uk
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20/12/2017 17:00
FULLY Adapted Family Run Self Catering Accommodation
An Historic Georgian period building Offering everything you need for that perfect trip away from home...
• Fully adapted farmhouse style kitchen with rise and fall sink/hob and accessible table • 3 bedrooms with rise and fall or profiling beds • Large covered patio with BBQ and sensory garden • Wheelchair/passenger lift between floors • X-Y ceiling track hoists in 2 bedrooms and 1 wet-room • Rise and fall changing/shower bench and clos’o’mat toilet...and much more
24hr care | physiotherapy | activities and trips home cooked meals | stunning coastal location
Get your copy of our
2018 respite breaks brochure now: 01620 892864 | brochure@leuchiehouse.org.uk www.leuchiehouse.org.uk
Visit our website for more information: visit themoathouse.co.uk or contact us on 0800 024 8641 Email: info@themoathouse.co.uk
Leuchie House, North Berwick, East Lothian EH39 5NT
Quote ENABLEWIN18
Scottish charity no SC042249 Company no SC392721 by Nekludov by Nekludov
Great holiday experiences should be accessible to everyone! WE LISTEN WE ASSESS WE SUPPORT
Hamill Care International is a leading name in supported holidays for people with a disability. We cater for anyone with a disability by providing them with the holiday they have always wanted. We aim to deliver in three simple steps… aWe can cater to whatever particular needs and disabilities a guest may have with support from a lively, qualified and experienced care team
aWe customise plans to suit individual needs
aProvide accessible travel to the traveller’s home airport and from Palma to their chosen resort
aQualified nurse escorts for transfers to and from their home to the resort
aOffer fantastic excursions and entertainment events during your stay
aAssess accommodation to ensure the facilities meet the traveller’s needs
Hamill Care International
Hamill Care International
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aMobility and care equipment sales and rentals
HCI
HCI
Hamill Care International
Hamill Care International SL AHamill Care Carrer Medge Llopis 6
International
07470 Port de Pollença Illes Balears, Spain
hamill care international e hamillcare@gmail.com
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00 34 971 965 081 00 34 636 284 328
hamill care international 21/12/2017 16:07
comes the
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Still feeling shocked that it’s 2018 already? It may seem like last year whizzed by – so why not give yourself something to remember in the new year? There’s no need to wallow in the dark nights, as we bring you the best breaks to add a touch of colour to your year
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here’s no denying that the start of the year can be pretty dreary – so dust off the January blues and get planning that sunshine break to look forward to later in the year! This time of year is perfect for booking a break away, with many tour operators offering discounted breaks and cut-price flights – and the world’s got a lot more to offer in terms of accessibility than you’d ever imagine!
Turn up the heat
Ditch the scarves and woolly hats for swimming costumes and sunglasses – it’s time to get some sun. It’s a sad fact that the average temperature in the UK at the start of the year is between three and six degrees. Sends a shiver down the spine just thinking about it. So why not hop on a plane and jet off to an island where the lowest temperature is 23 degrees, the water is clear blue, the beaches have miles of soft, white sand and the palm trees sway in that comforting breeze all day long? We’re talking Barbados. Can Be Done make the Caribbean accessible to all with their expertise and knowledge of disabled travel. Boasting a combined total of 30 years’ worth of experience in booking disability-friendly holidays, you are guaranteed to land in Barbados free from anxiety about what’s to come. Luckily, Barbados is an island that has accessibility at its heart – ensuring you have the best trip possible. Fully Accessible Barbados (www. fullyaccessiblebarbados.com) is working on the island, recognising the importance of accessibility for local residents and tourists. Enjoy a trip down the sugar-soft beaches in a beach wheelchair, or take a swim in the tropical sea in the same chair
thanks to the accessibility programme from FAB. Can Be Done will make your Caribbean dreams come true in a four-star hotel complete with restaurants, bars, pools, spa and gym. With prices starting from £725, you might not want to come back to the bitter coldness of home.
Open water
Granted, a long-haul flight can be daunting for some with accessibility needs. But beautiful sights, mountain dunes and volcanoes are waiting for you to visit – on the open water. Cruise ships are perfect for disabled travellers, with lots of built-in access features. And the team behind Disabled Access Holidays bring a great variety of disabled-friendly cruises to a handful of mystical and striking destinations.
Hop on a plane and jet off to an island where the lowest temperature is 23 degrees, the water is clear blue and the beaches have miles of white sand www.enablemagazine.co.uk
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Venture to the heart of the Canary Islands, enjoy weather blowing in from the African coast and indulge in the rustic scenery of the islands. Due to the close proximity to Africa, many beaches within the Canary Islands are semi-deserts with sand dunes and volcanic rock scattered around. Despite the desert terrain, greenery and flowers thrive alongside the volcanic backdrop – the island of Tenerife is home to the world’s third largest volcano, Mount Teide. A family-run business, Disabled Access Holidays’ Mike and Lynn Davies ensure all holidays are tailored to the individual’s needs, and are more than happy to organise mobility equipment, accessible rooms, adapted taxi transfers and even airport assistance. No stone is left unturned to ensure you have the best holiday or cruise experience possible.
Coach trip
The options are endless when it comes to accessible travel – nowadays, you really are spoiled for choice! Some might say they’re limitless, and that’s where Limitless Travel takes the wheel. Don’t hit the brakes on a trip away if planes and boats don’t cut it for you. Going old school on a coach trip has never been more fun. After being diagnosed with muscular dystrophy, founder Angus Drummond didn’t want to let the condition stop him from exploring the world – only to
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discover accessibility wasn’t what he expected. Fast-forward to the present day, and Limitless Travel offer holidays in a variety of different capacities – including jumping on the bus to spend five days in the cultural wonder that is Amsterdam. As one of the flattest locations in the world, the Amsterdam Adventure is completely wheelchair accessible. With a central, accessible hotel, accessible transport throughout your journey in Amsterdam, assistants to support your needs and a guide to point out all the key sights, this is one city break you won’t want to miss. The earlier months of the year don’t promise good weather, but it definitely heats up in the summer – and with picturesque tours in the Dutch countryside, art galleries and even cheese demonstrations, you won’t be short on things to do. Boasting a plethora of accessible, disability-friendly hotels and attractions, public transport that is all wheelchairfriendly and adapted for visual and hearing impairment, if you want to explore the city alone, you can do so to your heart’s content. Don’t let the damp weather outside bring you down, because this is going to be the most exciting start to the year ever. From stunning beaches and glorious coastlines to city breaks, travellers are spoiled for choice. Just remember to send us a postcard…
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FIND OUT MORE
Can Be Done
www.canbedone.co.uk 020 8907 2400
Disabled Access Holidays
www.disabledaccessholidays.com 0800 622 6000
Limitless Travel
www.limitlesstravel.org 0800 069 8060
Accessible Travel and Leisure
www.accessibletravel.co.uk 01452 729 739
Enable Holidays
www.enableholidays.com 0871 222 4939
www.enablemagazine.co.uk
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Hill of Maunderlea Lodges offers the perfect accommodation for your Scottish holiday. Nestled in fourteen acres of mature woodland. Our lodges provide a luxury standard of self-catering accommodation in an exceptionally beautiful, peaceful location with stunning views. There are also many interesting fishing villages with our dolphins and puffins to explore. Local attractions Duff House Royal Golf Club, River Deveron, Castles and the Famous Whisky Trail. The lodge can accommodate up to six guests and is equipped to the highest standards. Ground floor has disabled access, and received the Visit Scotland disabled award. Internet access. All bedlinen and towels. No smoking policy. Contact Lorraine Davidson - 01466 780 488 or 07776 405 753
www.aberdeenluxurylodges.com
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Travel insurance
Getting Covered
If you’re jetting off overseas, you’ll no doubt have a sizeable to-do list to get through before take off – and make sure that ‘travel insurance’ is right at the top. We found out what you need to think about before purchasing your policy
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t might not be something you like to think about, but so much can go wrong when you head off on holiday. Missing luggage, your wallet being stolen, a medical emergency – it’s a horrible thought, but a reality for thousands. Research has shown that one in four travellers don’t bother arranging travel insurance before setting off – the safety net that’s there for you should any of these situations arise. If you come up against an issue, whether that’s needing to go to hospital or damage to your property, you’ll be able to turn to your insurer for support or to cover the costs. The problem is, however, that many mainstream insurers won’t go near someone with a pre-existing medical condition or disability. Which is where specialist companies come in. TAILORED FIT “A specialist travel insurance provider will ask you more questions tailored to fit your travel needs up front and will provide you with a premium that is relevant to you and your medical circumstances,” explains Sarah Page, brand manager of Insurancewith, an insurance company offering medical insurance for travellers with pre-existing conditions. “By providing this additional information, when you purchase your travel insurance, emergency assistance
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teams will have a better understanding of “Some of the things we would recommend looking out for are if the cancellation and your medical situation should you need curtailment limits cover the cost of your assistance when you’re away. This will holiday costs. If you’re taking disability, reduce the time, stress and hassle you mobility and medical equipment away would otherwise spend liaising with you, make sure that you have between your GP at home, travel insurance that covers the non-English speaking Top tip any loss, theft or damage that doctors in your treating With insurance, get facility and the insurance quotes from a few different might happen to these. The medical expenses section of providers to make sure company.” you’re getting the best deal your policy should cover you As well as having this – but always read the small for replacement of prescription additional knowledge print to get the medication should this get lost, and understanding, a right cover stolen or damaged too.” specialist insurer will also Thinking of the worst before often offer better rates for heading off for an overseas adventure cover – a fraction of what a might take the shine off your holiday a mainstream company would quote. little, but knowing you have that back-up If, in the name of saving money, you in case of emergency means you can truly don’t disclose a pre-existing medical relax on your getaway. Get online and start condition to your insurer, your policy searching for appropriate cover now. Then may be void, meaning you’d be liable for all that’s left to do is have fun! any medical bills – so it’s really not worth the risk. Even if your condition is under control? Share the details. i
THE EXTRAS As well as making sure that your policy covers your condition, and knowing what the excess is should you need to make a claim relating to it, there are a few other factors to pay attention to. “It is always important to look for cover that will suit your needs, as not all travellers are the same,” Sarah points out.
FIND OUT MORE
Insurancewith
www.insurancewith.com 0203 5537 965
Fish Insurance
www.fishinsurance.co.uk
Chartwell
www.chartwellinsurance.co.uk
www.enablemagazine.co.uk
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• 8 accessible luxury lakeside lodges in Devon • 5 Caravan Club CL pitches with electric hook up • Well stocked 1.5 acre coarse fishing lake • Heated indoor pool (Seasonal) • Games Room and Free WiFi • Orchard and woodland walk • Dogs welcome
01409 211140 info@blagdonfarm.co.uk www.blagdonfarm.co.uk
The holiday you deserve, not just the respite you need
10% off for Enab le readers! *
Accessible excursions Brilliant live entertainment Daily in-house activities 24h on-call nurse-led care Fully accessible facilities Full board included Financial support available *Terms and conditions apply
Discover our three holiday centres located in Chigwell, Southampton and Southport. Jubilee Lodge
Netley Waterside
Sandpipers
To book a break or request your holiday brochure: Call: 0303 303 0145 quoting EN181 Email: bookings@revitalise.org.uk Visit: revitalise.org.uk Registered charity number 295072
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HOME from HOME Us Brits are so lucky to live in such a diverse landscape. From seaside views to towering mountains or busy cities, the UK has a lot to offer. The weather might not be up to much, but that doesn’t mean you can’t enjoy a fun-filled staycation
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rom Tower Bridge to the Giant’s Causeway, squirrels to a Highland cow, every corner of the UK has something different and interesting to offer. Who can blame us for wanting to celebrate and explore the scenery sitting right outside our front doors? Whether you’re after the calming surroundings of rural Oxfordshire or adventures up a Scottish mountain – there’s more to an accessible staycation than you might think.
Happy camping
Are you even British if you didn’t go to a caravan park when you were younger? Probably not, because this is a rite of passage for British families. Featuring entertainment in the form of singing, dancing and comedy, there is nothing better than packing up and going to the caravan for some holiday relief. Parkdean Holidays (www. parkdeanholidays.co.uk) have a selection of accessible and wheelchair accessible caravans available for visitors. Recently renovated caravans have been subtly modified to ensure all needs are catered for. Offering parks across the UK, from the seaside town of Torquay to the rolling cliffs of West Bay – for all you Broadchurch fans – there is a destination for single travellers, couples and families alike. Filled with indoor pools, amusements and play areas, bars and restaurants and nature trails, nothing will be left to the imagination during this break from reality. We might not be going on a summer holiday just yet, but this will be one break that will keep you feeling fresh as a daisy.
Supported breaks
For travellers looking for extra support during a break, Enable Holidays (www. enableholidays.com) are on hand to provide your ideal destination. They personally audit most properties and ensure wheelchair access is available throughout the accommodation and the resort – comfort is key on a break.
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Enjoy the sights and sounds of Blackpool, the seafront pier of Llandudno in Wales or the rural surroundings of Oxfordshire with Enable Holidays’ assisted holiday packages. Through Enable Holidays, you can relax without having to worry about organising additional care, all at no extra cost. Revitalise (www.revitalise.org.uk) also offer fantastic respite breaks at their three centres in England. You can go solo or with a friend, and all the support you need will be available. Offering exciting day trips, themed nights and brilliant facilities in Epping Forest, Southampton and Southport, Revitalise have a fantastic reputation of delivering quality respite with all the perks of a proper holiday.
Climbing high
For those who love the great outdoors – and aren’t fazed by a little cold weather – a hillwalking or climbing holiday could be on the cards. With help from the British Mountaineering Council (BMC) (www. thebmc.co.uk), you can take part in this fulfilling sport and see Britain in a whole new way. Getting the chance to bag a munro or walk the path less followed is a hobby that is accessible to all – it’s time to pack those walking boots. The main necessity to those living with a disability reaching the peak is practice, as with able-bodied climbers, and preparation. Many people living with a disability have gone on to achieve success at the top of a mountain, and alongside drive and determination is the support from the BMC. Wave goodbye to your living room and start off this year
There is nothing better than packing up and getting to the caravan for some holiday relief
by getting up and out in the name of adventure!
Emerald Isle
Looking to stay at home but still have itchy feet? Is the thought of braving the cold on a hill leaving a lot to be desired? Have the best of both worlds; stay at home but feel like your jetting off by visiting Northern Ireland or Eire. Getting to the Emereld Isle is easy, with two ferry routes between England and Ireland offering a total of 25 sailings a week, or hit the skies with a cheap flight to Dublin or Belfast courtesy of popular budget airlines. In Northern Ireland, stay in the heart of Belfast, moments away from local attractions – without breaking the bank. Make the most of your journey by staying in the five-star Fitz William Hotel before taking in the sights of the city. In 2016, Northern Ireland was hailed for its imaginative methods of transforming tourism experiences for disabled visitors, meaning almost all destinations are accessible. Go aboard the Ship of Dreams at Titanic Belfast on their cable car, or enjoy audio described and captioned performances at the Grand Opera House – take the time to drink in some culture alongside your side of Guinness. Belfast is full of creative flare, architecture and history, mixed in with the great outdoors just outside the city for tourists to enjoy. Heading off to Ireland is a trip within a trip, without the fuss of a long-haul flight. Boasting picturesque scenes and destinations to please all tastes, Britain has a little bit of something for everyone – so it’s time to pack those bags. Sit back and relax, de-stress and breathe in the wonderful hidden gems the UK has to offer. There’s no better way to start a new year than feeling completely rejuvenated – watch out 2018.
www.enablemagazine.co.uk
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The best of
BRITISH Whether you’re staying put at home or travelling to another part of the country, the UK is brimming with opportunities for you to act like a tourist. Check out these accessible attractions for inspiration
RIVERSIDE MUSEUM
www.glasgowlife.org.uk 0141 287 2720 Glasgow’s award-winning transport museum is packed with fascinating artefacts from years gone by and the modern day. From locomotives to skateboards, it’s a dream come true for transport enthusiasts. As a new-build, access was a priority in the design of the museum, and friendly staff are more than willing to help out if required. You can check out full access info online.
MUSEUM OF LIVERPOOL
www.liverpoolmuseums.org.uk 0151 478 4545 As well as boasting fantastic access features, such as braille guides, accessible toilets and lifts on all floors, and on-going work to make the galleries more autism-
friendly, the Museum of Liverpool have got a disability-focused exhibition running from 26 January to 15 April. The Blind School: Pioneering People and Places tells the story of Liverpool’s Royal School for the Blind, the first school for blind people in Britain, and the second in the world. As well as being truly fascinating, it’ll be fully accessible, with audio description, BSL interpretation and multisensory features to make sure it’s accessible to all.
LONDON ZOO
www.zsl.org Despite being 170 years old, the zoo is almost entirely accessible for wheelchair users and those with walking difficulties. Check out Special Children’s Day, from 19 to 20 May, where children with special needs and their families are encouraged to come meet the animals for a discounted entry fee. All staff are fully trained to support people with additional needs, and there are extra staff on-hand too – tickets go on sale in March.
WARNER BROS STUDIO TOUR
www.wbstudiotour.co.uk Whether you’re a Potter-head yourself, or know a mega fan, the Warner Bros Studio Tour is a must. Based in Hertfordshire, you get to see real sets, costumes and props from the movie franchise up close – it’s like roaming about Hogwarts for real! With BSL and audio described tours, good access throughout and free carer tickets, it’s also pretty magical in terms of access.
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THE DEEP
www.thedeep.co.uk 01482 381 000 The Deep, located in Hull, is one of the UK’s largest aquariums, and home to thousands of sea creatures, including sharks, rays and even penguins! Access is paramount at The Deep, with mobility aids available to borrow, free tickets for carers, and a comprehensive access guide available to download from the website ahead of your visit.
THE EDEN PROJECT
www.edenproject.com 01726 811 911 In Cornwall, The Eden Project is a unique conservation project, consisting of two biomes packed with incredible plants from all over the world. Access is good, with accessible parking and toilets, free carer tickets, and guides in a variety of accessible formats. It’s an incredible sensory experience too, with lots of smells, sounds and tactile exhibits to enjoy.
www.enablemagazine.co.uk
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SPOTLIGHT
B
orn on 4 January 1809, Louis Braille grew up with his family in a town called Coupvray in France. After an accident involving his father’s tools, Louis lost his sight, and then further blindness when he caught an infection. Attending one of the world’s first blind schools, the Royal Institute for Blind Youth in Paris, Louis had developed a basic template for the braille used today – aged just 15. It is for this reason that on 4 January every year, the world celebrates World Braille Day. DEVELOPMENT Initially developing a tool called a slate and stylus, Braille then got to work on his reading code. Having learned of a communication technique used by the French army called night writing, Braille used the methods of dots and dashes on thick paper and put his own twist on the method. At just 15, Braille had taken the code provided to him by Captain Charles Barbier and created his own unique system. The reading tool had now been shortened from 12 dots to just six – taking up space no larger than a fingertip. Despite the improved styling, including detailing how to use the six dots 63 different ways, the public was sceptical, so blind and visually impaired people had to learn braille in their own time. CHANGING ATTITUDES Braille has undergone many changes and improvements since it was first introduced, however, the main basis of the code remains the same: to create words from a six-dot cell. The cell is arranged two across and three down and is the basic unit for any word – numbered from one to three on the left and four to six on the right. Despite the use of braille as a form of communication for blind people, it was not recognised by the French government until 1952. Since, Braille’s code has been adapted to coincide with changes in the English language. With combined phrases, forms of shorthand, and punctuation, books in braille can be reduced in size. Today, stationery for those who read braille is also available, such as paper, printers and typewriters – but it is worth nothing that fewer than 1% of the UK’s blind population use braille, meaning there’s only around 12,000 braille-reading Brits. A useful tool for visually impaired people and which can be used by the sighted, braille is a truly world-changing invention. Opening the world of words, books and music to more people, this is one creation we can all appreciate.
The world of
Braille When a three-year-old boy lost his eyesight after an accident in 1812, nobody could have predicted the benefits this incident would have for the visually impaired community. Turning a military tool into a useful reading aid, Louis Braille opened up the world of reading, writing and music to thousands
i
FIND OUT MORE
You don’t have to be visually impaired to learn to read braille. Find out more with the Royal National Institute of Blind People, www.rnib.org.uk or call 0303 123 9999.
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DECEMBER 2016
PATHFINDER 17
HAVE YOU GOT A PROBLEM WITH ALCOHOL? ONLY YOU CAN DECIDE!
To answer this question ask yourself the following questions and answer them as honestly as you can 1. 2. 3. 4. 5. 6. 7. 8. 9. 10.
Is drinking making your home life unhappy? Does your drinking make you careless of your families welfare? Do you drink because you are shy with other people? Is drinking affecting your reputation? Do you drink to escape from worries or trouble? Do you drink alone? Have you lost time from work due to drinking? Has your ambition decreased since drinking? Has you efficiency decreased since drinking? Is drinking jeopardising your job or business?
11. Have you ever felt remorse after drinking? 12. Are you in financial difficulties as a result of drinking? 13. Do you turn to or seek an inferior environment when drinking? 14. Do you crave a drink at a definite time daily? 15. Does drinking cause you to have difficulty in sleeping? 16. Do you want a drink the next morning? 17. Do you drink to build up your confidence? 18. Have you ever had a complete loss of memory as a result of drinking? 19. Has your Dr ever treated you for drinking?
If you have answered “YES” to any one of the questions, there is a definite warning… If you have answered “YES” to any two, the chances are that you have a problem… If you have answered “YES” to three or more, you most certainly have a problem…
“THE ONLY REQUIREMENT IS A DESIRE TO STOP DRINKING” Take action now and give us a call on 0800 917 7650… We are here to help!
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21/12/2017 10:22
LOVE
is all around
Let’s talk about sex, baby – and let’s talk about improving sex education for disabled people. Let’s end the idea that people with a disability are not sexual beings who don’t deserve to have the right knowledge, advice and support. Remember – all you need is love
SPOTLIGHT
A
little dose of truth coming your way – every single person in the world feels self-conscious. Even the most confident person will have moments where they are unhappy with the way they look. Society does an amazing job of forcing beauty ‘ideals’ upon us. Another thing society does well is enforcing the idea that disabled people are not sexual. This is wrong. Everyone is beautiful in their own unique way, and we all deserve the right to experience love – be it emotional or physical, friendship or the love of family, being in a relationship or experimenting to figure out what works for you.
SAFETY Understanding safe sex, relationships, love and everything in between is important for everyone to know, regardless of ability. Knowledge of intimate relationships is important, even if someone will never be physically intimate – it is also a matter of personal safety. Journalist and disabled activist with Enhance the UK Mik Scarlet says: “You have to raise your disabled child to be sexual too; you have to give them all the skills you would have given them if they weren’t disabled. That doubly applies to children with learning disabilities. The physically disabled community campaigns about our own right to sexuality – to be considered worthy of love – but we have to support the learning disabled community because they are still perceived as childlike. The problem with that is that all disabled people are perceived as somewhat childlike, which is an out-dated and untrue, negative way of viewing it.” Proper education in safe sex, relationships and contraception is important, as disabled people are at higher risk of abuse. A BBC investigation revealed that there were 4,748 reports of sexual abuse against disabled adults across 106 councils in England from 2013 to 2015*. People with a learning disability were at a greater risk, as 63% of those who reported abuse had a learning disability – this highlights the need for inclusive sex education, and understanding what’s acceptable and what isn’t when it comes to sex and relationships. www.enablemagazine.co.uk
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SPOTLIGHT
LOVE LOUNGE Understanding and being confident in
You have to raise your disabled child to be sexual too; you have to give them all the skills you would have given them if they weren’t disabled Mik Scarlet, Enhance the UK your body is the first step to increased knowledge of safe sex. It is for this reason that Enhance the UK host The Love Lounge. Mik, alongside his colleague Emily Yates, answer questions that disabled people might have about friendship, love, intimacy and the basics of how to have sex when you’re disabled. Mik explains: “The letters I get, if you took out the words disabled and left in ‘I like this, is this normal?’, it would be what you would expect of any agony aunt or uncle. Any problem page would get the same sorts of questions, the only difference is ours have ‘disabled’ in them. There are specific issues, for example spasming, but I wouldn’t know if sex education could cover that in the broadest sense. That’s
why things like The Love Lounge exist, because we can help, and if we don’t know something, we know who to put you in touch with.” Having a safe place to discuss your wants, desires or simply to get more information on your body is important for everyone. At present, disabled people are less likely to be tested for sexually transmitted infections, receive the relevant information on various forms of contraception and there is a lack of mammogram or smear testing in women. This is a dangerous attitude to have, and excludes people on the basis of their disability. Ensuring sex education is inclusive for all is essential ino order for people to enjoy and thrive in healthy relationships, and know when something is not right. “By overly protecting people because you think they won’t need to know that – well, they might. It is better to know it and not need it than not know it and really, really need it,” says Mik. From friendships to romance and intimacy, providing people of all abilities with relevant information and understanding when it comes to sex is critical, in schools and beyond. Levels of abuse are still prominent and this could be reduced if better sex education was available. It is time to stop treating people with disabilities like children – a safe, happy and trusting sex life should be open to all.
i
FIND OUT MORE
Get honest advice about contraception, sex, relationships and sexual health by visiting FPA, the sexual health charity, at www.fpa.org.uk or 0300 123 7123 Have a question you need answered? Head over to The Love Lounge for hints, tips and real life experiences, www.enhancetheuk.org
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* ‘SEXUAL ABUSE OF DISABLED ADULTS REVEALED’ BBC, 2015
PRIVATE Knowing basic bodily functions, understanding consent and what goes where is a right we all have. “The important thing for young people with learning disabilities is that they should be taught at their ability level, not by age. The information they receive needs to be accessible, non-judgmental and transferable to the different situations young people might find themselves in,” explains Claire Lightley, head of training at the sexual health charity FPA. Navigating relationships and sexual health is a struggle at times for nondisabled people, however there is more information available for them, because they are seen as sexual. There is still a taboo around the fact that someone with a disability can be sexual, and this can lead to issues, not least lack of understanding. “For people with severe disabilities, they need information to help them understand what parts of the body are private, how sexual activity is different from personal care, and what to do if something happens that they’re not happy about,” adds Claire. “They should also be taught positively about sensuality and what feels good, regardless of whether they’ll be able to have a sexual relationship with somebody else.”
www.enablemagazine.co.uk
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21/12/2017 16:34
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21/12/2017 12:19
VIOLENT AND CHALLENGING BEHAVIOUR
Families on the edge For some parents of children with autism or learning disabilities, managing violent or challenging behaviour can be a daily struggle which renders the family unable to go anywhere, do anything or see anyone – yet it’s something that few are willing to talk about, and for which there is very little support. We spoke with two mums about their families’ experiences, and found out what needs to change
N
o parent really knows what sort of mood their child is going to be in – kids are wildly unpredictable that way. But for some families, that unpredictability is a very scary prospect, as their child’s behaviour can be so extreme that it ends in violence or damage to the home. Miriam Gwynne’s nine-year-old son Isaac has autism, learning difficulties, is non-verbal and has a condition called neurofibromatosis, which has resulted in a tumour on his brain. He’s a loving little boy, who is obsessed with Bing on CBeebies and lifts. Isaac also displays extremely challenging and violent behaviour. As he’s non-verbal, he’s not able to communicate how he’s feeling – and lashes out as a result. He has certain triggers – a change in routine, or a door opening, for instance – which will send him into meltdown. “To an outsider, it looks like he’s very disruptive, he’s very aggressive,” explains mum Miriam, who’s from Hamilton in South Lanarkshire. “For me, it’s immense sensory seeking. Everything is over the top. He self-harms too. He can’t cope with doors being open – he will throw himself down the stairs; he’ll throw everything he can down the stairs. He’ll smash things, he’ll bite himself, he’ll throw anything he can get his hands on, he’ll try and smash windows – but all he’s trying to do is communicate that he wants that door shut, and as soon as that door’s shut, he’ll be calm.”
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Trigger
Violent and challenging behaviour like Isaac’s can be a result of autism or learning disabilities where communication is an issue – it can be triggered by environment, relationships, discomfort or frustration. “Challenging behaviour is behaviour that is challenging for parents, carers and teachers,” explains James Robinson, policy officer for learning disability charity Mencap. “This may include tantrums, hitting, kicking and general
behaviour that’s harmful to both the person and those around them.” Norwich native Suzie Wilder’s sixyear-old son Monty has high-functioning autism, and she says that his behaviour has been difficult to handle. At school, he’s well-behaved, able to mimic his classmates and hold in his frustrations. At home, though, it’s a very different story. “For a six-year-old child, he’s very violent and controlling,” explains Suzie. “He cannot communicate his
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FAMILY
thoughts. He finds social communication incredibly difficult. When he is anxious, that will come out in a complete outburst, which can last quite a long time and be very, very intense.”
Behaviour management
Both Suzie and Miriam say that traditional parenting methods like sanctions and consequences don’t work with their children – taking away an iPad, for instance, only makes the situation worse. So they have to think about behaviour management in a different way. “There’s no point in just telling Monty to stop. It’s all about de-escalating it and letting it happen,” says Suzie. “But once everything’s died down,we go back and talk about that behaviour and why it’s wrong – what he could maybe do differently next time if he’s getting cross and frustrated, deep breathing and that kind of thing, while getting to the root of why he’s feeling the way he is.”
Things are more complex for Miriam. Isaac’s learning difficulties are such that there is often no reasoning with him – she’s learned to tap into something else. “We know there are certain things in life that he really enjoys,” she says. “When he’s in meltdown, I’ll strap him into my car, drive to ASDA and he watches the lift. Lifts are his obsession. It’s doors that always close – and they keep on closing. As soon as he gets there, he becomes a different child because he’s getting the sensory input that he’s craving. So when he’s in that situation, I have to find some sort of serious sensory stimulus that’s going to give him the feedback he desperately needs to self-soothe.” Through social services, under the Children and Families Act 2014, families are entitled to an assessment of need for their child and a carers assessment for themselves. The local authority will assess your situation, decide if support is
Just that process of finding some help will make you feel better. It makes you feel like you’re doing something, and you’re more empowered
needed and assign a budget if necessary to pay for support.
Lack of support
That support for parents of children with violent and challenging behaviour, however, is chronically under-funded and scarcely available. Monty’s twoand-a-half-year-old brother Theo is now also going through the diagnosis process for autism, and Suzie says that even in the few years since her eldest was diagnosed, she’s noticing a huge difference in terms of what is and isn’t available. It’s because of this lack of support that many families are struggling – both Miriam and Suzie admit to having had issues with their own mental health. “Reaching out to people, saying this is what it is, and not getting any help for it is so frustrating,” Suzie says. “I was very poorly this summer, it was almost like the stress of everything. I had to be referred to adult mental health services and they gave me medication. It’s been very, very tough – it’s very isolating.” For both families, life is unpredictable – but neither mum would change their children for the world. What they would change, however, is society’s attitude towards their kids, local authorities’ approach to supporting them – and for more families to talk about their issues to make it less of a taboo. “If there are services available in your area, go and seek them,” Suzie adds. “You might have to fight a bit, but just that process of finding some help will make you feel better. It makes you feel like you’re doing something, and you’re more empowered. You don’t just have to plod on and live like that. There is help. You just have to go and find it.” i
FIND OUT MORE
Mencap
www.mencap.org.uk 0808 808 1111
The Challenging Behaviour Foundation UK www.challenging behaviour.org.uk 0300 666 0126
National Autistic Society
www.autism.org.uk 0808 800 4104
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LIFE
THE
DIARY 12 JANUARY 6 JANUARY
AUTISM AND LEARNING DISABILITIES – OVERCOMING THE CHALLENGES
The Waterloo Action Centre, London www.eventbrite.co.uk Led by Mark Brown and Yvonne Newbold, the sessions will cover reducing violent and challenging behaviour with discussions on sexuality and puberty. The event is open for parents, carers and professionals that work with children, young people and adults with autism or learning disabilities. The innovative event was a great success in October 2017, and spaces are filling up fast for January. Tickets start from £27.14 and are available through Eventbrite.
TONY ATWOOD 2018 EVENT
Manchester www.medicacpd.com Autism expert Dr Tony Atwood is coming to Manchester, and is inviting professionals and families to attend. Gain new insight and knowledge on how you can make a real difference for those on the autism spectrum. Covering abilities in learning, emotions, understanding autism diagnosis and sensory difficulties, a wide range of skills will be applied throughout the event. Tickets cost £99, with a discount available for parents and carers.
31 JANUARY1 FEBR
UARY MOVING AND HAND LING PEOPLE SOUTH
Watford Hilton, El ton Way www.movingand handlingpeople.c o.uk This two-day even t is ideal for practit ion ers looking to develop and advance their movement skillset. During the event, th ere will be hands-on wo rkshops to further learn how to safely mov e people with dem entia, complex needs an d in emergency sit uations. Meet and network with professionals to bring new practices back to colleagues. During forum even ts, organisers enco urage attendees to bring along issues to cove r during discussion sessions.
22 JANUARY
CEREBRAL PALSY OPEN MORNING
The Bobath Centre for Children with Cerebral Palsy, London www.bobath.org.uk Families new to cerebral palsy are welcome to attend this open morning to discover more about the condition and how specialist therapy can aid a child’s development. Experienced Bobath therapists will be on hand to discuss how therapy can assist movement, development, communication and more.
1 FEBRUARY
TIME TO TALK DAY
27 FEBRUARY
SPECIAL EDUCATIONAL NEEDS AND DISABILITY – LOOKING BEYOND THE REFORMS
Park Plaza Leeds, Boar Lane www.councilfordisabledchildren.org.uk This Council for Disabled Children’s event will include exceptional speakers from Ofsted, the Department for Education, the Care Quality Commission, and many more. It’ll feature workshops discussing how you can maximise your work with health professionals, as well as information about new and updated laws, including the Children and Families Act 2014. For more information, you can contact Tristan Shorrock on tshorrock@ncb.org.uk.
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Email us
If you have any events coming up in March and April, email us at
diary@enablemagazine.co.uk with the details for inclusion in next issue’s diary.
Across UK www.time-to-change.org.uk Free and open to all who wish to participate, mental health charity Time to Change will be running Time to Talk Day. The campaign looks to promote open and honest discussions on various mental health conditions. Events will be taking place across the country, including a Time to Talk About Social Anxiety event taking place at Cornwall College, Pool. Resources and materials are available from the Time to Change website to encourage more people to discuss mental health.
www.enablemagazine.co.uk
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20/12/2017 16:43
Interested in Whisky? Deathtrap not get in- 10 touch and take advantage of our 20 February March expert knowledge and our 170 years experience. BSLI - Sat 10 March, As Scotland’s oldest independent bottler we 2:30pm cherry pick the best casks for bottling and offer fun andAudio informative tastings. Described Em ail us stock list or bring Satto 10receive March, our 2:30pm this advert into the shop for a quick lesson Captioned - Sat 10 March, (with dram). 2:30pm
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RCPCH Conference 2018 is where professionals who work with children and young people come together to share knowledge and hear from inspirational speakers. The theme for this year’s event will explore the vital area of ethics, morality and advocacy in childhood. Join other delegates and share your experiences. Check out the full programme and book your discounted place at:
www.rcpch.ac.uk/annual-conference Early bird offers end 24 January 2018.
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LIFE
Product From independent living aids to tech, we take a look at some of the best buys on the market
THE DECHOKER
Pivotell, £122.40 (www.dechokeruk.com, 0203 858 0878) The Dechoker is a handy device for those who are prone to choking. You can unblock airways really easily with this, and potentially save a life at the same time. Contact the producer now for details of how to purchase.
KITCHEN WORKSTATION PILL DISPENSER
Pivotell, £122.40 (www.pivotell.co.uk, 01799 550 979) Pivotell’s Advance Automatic Pill Dispenser has lots of extra safety features to avoid risk of double dosing, and helps both the user and their carers or pharmacist to keep track of things easily. It can dispense pills up to 24 times a day at preprogrammed times, and an alarm sounds too to alert the user.
Complete Care Shop, RRP £59.46 exc VAT (www.completecareshop.co.uk, 03330 160 000) The Homecraft kitchen workstation provides assistance with food prep, with its useful selection of aids and secure tools. You’ll be able to slice, grate and chop with ease! Great for those with difficulty gripping, such as people with arthritis. Best of all? It’s dishwasher safe.
ULTRA LIGHTWEIGHT FOLDING FOUR-WHEEL ROLLATOR
Grace Mobility, £99 (www.gracemobility.co.uk, 01608 695 880) The aluminium frame makes this rollator lightweight, but durable enough for daily use. With anatomically-designed, adjustable-height handgrips and arthritic-friendly loop cable brakes, it is suitable for anyone that struggles with gripping. Also features a canvas seat, padded backrest, walking stick holder and detachable shopping bag. It folds flat, and comes in six different colours.
CEREBRA SLEDGE
Gordon Ellis Direct, £299 (www.gordonellisdirect.co.uk) If you’re holding on to the hope of it snowing, it might be worth investing in the Cerebra sledge so all the family can enjoy the white stuff. Originally designed for a young wheelchair user, the sledge is now available to all. With a secure seat, low centre of gravity, straps and arm rests, it’s great for kids who might struggle on a traditional sledge.
www.enablemagazine.co.uk
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21/12/2017 11:52
The review
Mazda2
A mid-life update makes the Mazda2 more refined and even better to drive – and it all adds up to a supermini that deserves your attention. Alisdair Suttie hit the road in the revamped 2 to put it through its paces
Inside
The revised Mazda2 has a new steering wheel design, updated seat fabrics and reshaped exterior door mirrors to give the driver a better view of what’s behind. Just as importantly, there’s more sound-proofing and noise-insulating windows to make the car quieter at higher speeds. The rest of the 2’s cabin carries on as before, so you have an excellent driving position and better all-round vision compared to many of the Mazda’s rivals.
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The driver’s seat has height adjustment, and all of the main instruments are easy to see and read. One area where the 2 puts itself ahead of most competitors is the simplicity of its ventilation and infotainment controls. The round dials for the heating don’t need to divert your attention away from the road ahead, while the rotary control for the 7-inch display screen is handily down between the front seats to save you stretching to the touchscreen as you drive.
Driving The big news for the Mazda2’s driving manner is the addition of G-Vectoring Control. It divides the power between the front wheels, depending on which has the most grip to maintain traction and stability. You don’t feel it working, but you will notice the 2 feels sure-footed at all times. It’s not as much fun to drive as a Ford Fiesta, but it’s comfortable and very quiet inside. There are no diesel engine options with the 2, which is fine as the 1.5-litre petrol comes in 75, 90 and 115hp versions, depending on which trim level you choose. There’s also a choice of five-speed manual or six ratio automatic transmissions that are smooth to use. Each engine works keenly and is easy on fuel, so it just depends on how quickly you want to accelerate.
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MOTORS Find your ideal car Rica, a consumer research charity working with older and disabled people, has a unique online car search with key measurements and fact sheets. Check it out online at www.rica.org.uk/content/ car-search.
Each engine works keenly and is easy on fuel Equipment The entry-point SE model is the most affordable, but we’d steer clear unless on a strict budget, as it misses the 60/40 split and fold rear seat of other versions. You do get air conditioning, electric front windows and six airbags in the base model, but a better bet is the SE-L that comes with alloy wheels, cruise control, electric rear windows, LED front fog lights, heated and power-folding door mirrors, Bluetooth connection and a height-adjustable front passenger seat. Move up to the SE-L Nav and it comes with the seven-inch
Summary
touchscreen display and satellite navigation, digital radio, Lane Departure Warning System and Smart City Brake Support to stop the car if you don’t spot a hazard. With the Tech Edition, you get 16-inch alloys, rear privacy glass, parking sensors, metallic paint and rain-sensing wipers. The Sport Nav adds sat-nav back into this mix, while the GT has LED headlights, rear spoiler and leather upholstery. Choose the GT and Sport and you gain daytime running lights and a more powerful 115hp 1.5-litre petrol engine.
The Mazda2 is one of the best superminis to drive, and thanks to this update, it’s now among the most refined. It’s also well equipped, but a little pricey.
Motability Customers The Mazda2 is available through the Motability Scheme, starting from your total weekly allowance plus zero Advance Payment. Find out more about the Scheme at www.motability.co.uk, or call 0300 456 4566.
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21/12/2017 11:37
LIFE
Talking about the
A Word
The creative arts have always been a haven for inclusivity and celebrating diversity – and autism has played an increasingly high-profile role in TV dramas in the UK and across the pond. But can our television sets ever accurately depict life as an autistic person?
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round 700,000 people across the UK are autistic, meaning they see, understand and interact with the world in a different way. Communicating can be challenging, learning can cause issues, and everyone has a different experience of autism. As the autism spectrum is so varied, it can be hard to paint a clear picture of traits and challenging behaviour associated with autism. Regardless of gender, ethnicity or location, anyone can be autistic, and it is not a one size fits all disability. For this reason, more needs to be done in terms of public understanding. STORYTIME “There is a gap between awareness and understanding, which is always great for storytellers because there is an interest and then a space to be filled by stories, by real life and by proper experience that fills out a public interest in something closer to understanding,” says Tom Purser, head of campaigns for the National Autistic Society. In recent years, autism has been a topic that has been increasingly highlighted within the creative industries. Some TV shows have represented the autistic community well, and some have not. The BBC is continually working to embrace diversity with intriguing and factual dramas, documentaries and TV series. Leading the way in accurately representing the autistic community, the BBC has recently shown two shows that are changing the script in autistic storytelling. HONEST In 2017, Paper Owl Films created Pablo, a children’s show mixing reality and animation together. Pablo is an autistic young boy who can sometimes find everyday experiences challenging – and
this is where his crayons come in handy. Creating an animated world around him, Pablo and his animal friends work together to figure out the confusing or challenging moments happening around him. The show has already been a great success on CBeebies because of its honest portrayals of autism. CBeebies programme executive Sarah Legg-Barratt explains: “I think Paper Owl Films took great care in ensuring each of Pablo’s friends had a clearly recognisable trait. They really wanted as many traits as possible to be represented on screen, but without it being limited to one character. I think this was a brilliant idea as autism can be very broad. There’s a saying, if you’ve met a person with autism, you’ve met one person with autism. No two people experience autism in exactly the same way.” Pablo is just one of the BBC’s shows depicting autism to viewers. Now in its second series, The A Word has also been praised by the autistic community, families and charities alike for its refreshingly honest portrayal of themes like diagnosis, family dynamics and finding specialised schools.
Campaigner Noel Conway
“The fact that the BBC are redrawing that definition of programme making is really welcome. I think for autistic children who are watching Pablo, they will see themselves represented on screen and in their stories,” says Tom. “It is actually really positive because they may grow up being the only autistic child in the school, and knowing they are part of the 700,000 people in the UK who are autistic, and knowing you’re part of that at an early age, is really important.”
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LIFE THE AUTISTIC VOICE Creative direction is not void of criticism, and some shows have missed the mark on fair representation. American shows Atypical and The Good Doctor have interesting plots, with humour mixed in with drama, but some people have commented that characters are too stereotypical. One reason the BBC may be succeeding in their portrayals is because autistic people get involved in the entire creative process. Part of Pablo’s success is in the fact it has an autistic-led cast, and is based around true-life experiences of the autistic community. It is all very well highlighting moments that people associate with autism, but it is another to delve into the way an autistic person understands and processes information. Working alongside autistic young people and the National Autistic Society, head writer Andrew Brenner utilised the information and feedback to depict a true image of autism. The importance of inclusivity is intertwined in all aspects of the show – the National Autistic Society’s young ambassador Rosie King was also part of the cast on Pablo. “[Andrew] listened to their life experiences, and coached them to
The A Word
write scripts for the show. Most of the episodes are based around real-life experiences, which gives it authenticity. Then on screen, it was important that the characters were played by people who are on the autism spectrum in order to accurately portray what autism is,” explains Sarah. Using the voices of the autistic community has not gone unnoticed amongst the public, who are praising Pablo. OPPORTUNITY Sarah adds: “Parents of children with autism have fed back really positive
comments about portrayal, or highlighting aspects that are similar to their child. One mother said she cried when she saw Pablo flapping as it was just like her son, who grinned and flapped along whilst watching.” Experiences such as this reveal that Pablo and The A Word have embraced their opportunity to represent a community that people still don’t fully understand. As Tom adds: “Autism is universal – there are lots of stories to be told.” And it is in the hands of programme makers to put their skills and platforms to good use. Encouraging an open dialogue on autism is the first step towards improving knowledge and acceptance. That small child you see in the street might not be having a tantrum; they may just process the world around them differently. Put yourself in Pablo’s shoes and step into an animated world, figuring out the A word.
The BBC is continuing their work to highlight autism with more shows, short films and documentaries commissioned. Discover more at www.bbc.co.uk.
Autism is universal – there are lots of stories to be told
PICS: © BBC/FIFTY FATHOMS/KESHET INTERNATIONAL
Tom Purser, The National Autistic Society
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GONE
Clubbing Going out with friends, enjoying live music and dancing in a club are just a few of life’s pleasures. Nightclubs are now opening their arms to those with access needs, with inclusive events taking place up and down the country – because being disabled shouldn’t mean you miss out on a night on the tiles
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n the 90s, as Danish singer Whigfield plaited her hair and sang about Saturday nights, clubbing went mainstream. Granted, going out socialising with your friends over a drink with loud music blaring wasn’t a radical thing to do, but the decade definitely added a little something to the mix. As the youth went out to party, meet new people and forged memories (some fuzzier than others), disabled people may not have felt as welcome, or as safe, on the club scene. That was until an underground movement surfaced, bringing authentic club nights to all. MODERN TOUCH When a new member joined community group Life You Choose, the doors to clubs started to open. The not-for-profit arts and multimedia group encourages the creative flare of their members to flow freely, with opportunities to make films and get involved in live performances, alongside making music. Matt Berry not only wanted to make music when he joined Life You Choose, he wanted to be a DJ. “He is very much interested in music. We were talking about doing a disco, and then it became apparent Matt liked dance music. We wanted to try and do something more modern – we always try and do more modern things,” explains Nicola Woswick, co-founder of Life You Choose . From discussions to reality, Matt and
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Life You Choose worked together to host one of the first inclusive club nights in the UK. Getting to grips with performing and DJing was the first hurdle, and one which Matt embraced. He says: “At first, it was really hard, but I got used to it.” And with the help from Life You Choose co-founder Ken Smith, the tracks were ready to be dropped for excited club-goers. GROWING UP As the music fills the club, friends get to spend time together and everyone has a great night out – on their own terms. From the success of Life You Choose, inclusive club nights are the way forward for many who feel nervous of braving a nightclub. Part of growing up is discovering new places, having new experiences and, let’s face it, going out clubbing – so why should disabled people miss out?
Having a disability – physical, sensory or learning – doesn’t mean certain events or experiences have to be off limits. Inclusive nights out are more about allowing those moments to happen in a safe environment – not segregating disabled and non-disabled people. “We talk to them very openly; we’re not trying to mollycoddle anyone or wrap them in cotton wool or keep them away from everyone else. We just want to make sure they feel comfortable, and if they feel comfortable there, go to a real nightclub,” says Ken. “A lot of parents, carers and friends of those with a learning disability have said it’s very unique and modern thinking, and we’re dragging the care industry kicking and screaming into the future. That’s the feedback we get all the time – this is what we’ve been waiting for.”
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LIFE
Matt Berry, DJ
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PIC: © KELSEY ANN DAVIES
Everyone has the right to party
SUCCESS Feedback about the club nights has been exceptional. So positive in fact, that the nights are now taking place every quarter. Why is this a good thing? “Everyone has the right to party. I want our club night to grow and get bigger,” says Matt. And with their recipe for success, it looks like the only way is up. Part of the victory comes from the undeniable need for inclusive nighttimebased events, from clubbing to going to live gigs. Living with a disability can be seen as limiting for some, and that can cause isolation and a sense of being left out. Nicola explains: “In the day centre, people build relationships but then get put into different groups and don’t see each other outside. For me, the social aspect is missing; a safe place that they can go and have fun with their friends – they’re missing a lot.” The club nights are a simple yet effective way to allow young adults and grown-ups to experience what we all should be able to – fun. Keeping the experience as close to the original club format as possible, alcohol is also served – because why shouldn’t adults be allowed to have a drink while they dance? Ken says: “We’re helping develop their confidence, self-awareness and what they’re actually capable of.” Life You Choose are running inclusive club nights in the most realistic way possible. There is music, there are lights, there is dancing, there is drinking and there is a group of people having the best night out, regardless of ability. “There is a quiet area, a medium area, and so on for different levels. We’ve got areas where you can socialise, we’ve got people in relationships and they can spend time together. In the middle part, you get the atmosphere a little bit with the dance floor and the lights,” says Nicola. If anyone were to come in off the street, they would see a group of people enjoying a night out with friends, music, and dancing. As Matt rightly expressed, we all have the right to party, and disabilities shouldn’t come with an early bedtime. Time to dig out your dancing shoes.
FIND OUT MORE
Life You Choose run regular media and arts projects alongside their club nights. For more information visit, www.lifeyouchoose.org.
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SPOTLIGHT Enriching the lives of participants and those they support, VoluntEars offers a whole new take on travel. Director Richard Clowes explains how VoluntEars are bringing a world of experience and inclusivity to D/deaf and hard of hearing participants
A WORLD OF ADVENTURE WITH
VOLUNTEARS W
hat is VoluntEars? VoluntEars runs trips to interesting countries like Sri Lanka, Nepal and Ghana for D/deaf, hard of hearing and hearing people. Our trips combine worthwhile work with local Deaf schools and visiting the must-see sights in each country. Most of our partner Deaf schools are underfunded and receive very little support from other organisations so we help with renovation work in their classrooms and dormitories, and spend time doing activities with their students.
Croatia are popular suggestions at the moment. We give volunteers plenty of information before arriving overseas, and we run optional pre-trip meetings in the UK to help them prepare. This is also a good opportunity to meet fellow travellers and get all their questions answered. What do participants gain from taking part in the trips? Increased self-confidence. A thirst for more travel. A better understanding of what life is like for D/deaf people in another country. A sense of belonging to a global deaf community. Satisfaction from helping a worthwhile project with a local Deaf school. A feeling of inclusion – because everything VoluntEars does is tailored to the requirements of D/deaf and HoH people.
How do the BSL communicators help facilitate the trip for those with hearing issues? No other travel organisation has such good communication support for D/deaf or HoH people. Our BSL communicators are a really important part of VoluntEars trips. They ensure that all information is communicated smoothly so everyone Who can get involved? feels fully included the whole time. We welcome D/deaf, HoH and hearing That means everything from people on our trips. Most people the orientation on arrival in have some connection to Kathmandu to how to eat the deaf community; they Everything food with your right hand might be D/deaf or HoH VoluntEars does in Sri Lanka. themselves or join with a D/deaf relative or is tailored to the How do volunteers friend; they could be requirements of respond to the a teacher of the deaf, D/deaf and HoH activities communication support people and destinations? worker or interpreter Overwhelmingly positively wanting to use their skills – in fact, over 10% of our in a new way; or they could customers re-join for a second be studying deaf studies or BSL at trip. The most common question from university or evening classes. Everyone ex-volunteers is, “Which new destinations makes a valuable contribution in their are you starting next year?” Peru and own way.
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FIND OUT MORE
To get involved, visit the VoluntEars website, www.voluntears.info Text/call on 07713 752124 or email contact@voluntears.info
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Are you looking for work? Support to Work is Scope’s digital employment service. It can help you with:
• Personalised support by email, telephone or Skype • Employability skills • Support with writing CVs • Interview preparation. Find out if we can support you and apply:
scope.org.uk/ supporttowork This service is proudly funded by Virgin Media 12297_A Scope is a registered charity, number 208231. Copyright Scope October 2017
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EMPLOYMENT AND EDUCATION
SUPPORT NETWORK If you’re looking for work and feel like you’re getting nowhere, it could be time to reach out for some extra help. Check out these organisations for guidance REMPLOY
www.remploy.org.uk 0300 456 8052 Remploy offer a range of services for disabled jobseekers. Their trained advisers help people with a range of disabilities and health issues to prepare for employment, find work, or move into a new job. They offer skills development workshops, interview skills training, CV advice, and provide support when it comes to applying for jobs too – either online, face-to-face or a combination of the two. They can also offer support once you’re in work, to make sure you can carry out your job to the best of your ability.
PURPLE
www.wearepurple.org.uk 01245 392 300 Social enterprise Purple offer lots of different support options for disabled people, from payroll services for those employing PAs to advice on using personal health budgets – and they have employment support available too. With an employment agency, matching disabled people with disability-friendly employers, and Job Club, which involves pre-employment programmes to help disabled people get closer to the workplace, Purple are well worth checking out.
JOBCENTRE PLUS
www.gov.uk/jobsearch Stop in at your local Jobcentre for advice, information and support to help you get into work. Some centres have Disability Employment Advisers, who have specialist knowledge in disability support services, but work coaches are also well-informed on disability-specific issues They’ll be
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able to tell you about programmes and grants to help you into employment, including Work Choice, Access to Work, and Specialist Employability Support – an intensive support and training programme that’ll help you get into work. You can find your nearest Jobcentre online at los.direct.gov.uk.
BASE
www.base-uk.org 01204 880 733 The British Association for Supported Employment is the go-to organisation for information on supported employment. Usually targeting people with learning disabilities or mental health needs, supported employment gets you into a job, with the right amount of support to help you carry out your role. BASE can advise on lots of different elements of supported employment, and point you towards local providers.
ACCESS TO WORK
www.gov.uk/access-to-work 0800 121 7479 Access to Work is a government fund that employers can apply for to support anyone with a mental or physical condition that makes it hard for them to do their job. It can be used to purchase specialist equipment or to pay for adaptations – so make sure you let your employer know about this useful resource.
SHAW TRUST
www.shaw-trust.org.uk 0300 30 33 111 Established in 1982, Shaw Trust provides employment opportunities, skills development training, and health and wellbeing services across the UK. They deliver the government’s Work Choice and Specialist Employability Support programmes, to help disabled people get ready for work, and then to thrive in the workplace. They’ve got over 200 centres – head to the website to find your nearest one, or give them a call on the number above.
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We found it extremely beneficial being able to attend an occupational therapy event. OTAC presented us with a perfect opportunity to engage with occupational therapists. There was a good mix of exhibitors, which definitely complimented the format of the event. Louise Cusack UK Regional & Specialist Section Manager Royal College of Occupational Therapists
Occupational Therapist? Say hello to the UK’s only FREE Occupational Therapy Adaptation Conference and Exhibition.
With Ten locations around the UK in 2018, you’ll find an event that’s right for you, and when you attend an OTAC event, you’ll discover advice and help to:
Each year we help thousands of Occupational Therapists all over the UK access advice, guidance and practical help, to help them do their jobs better and make the world better. At the same time, we ensure that the organisations that supply and support the work of occupational therapy, find the contacts they need to grow their operations and support more people.
Help you feel confident and competent when writing adaptation recommendations Aid you in discovering new skills and equipment to make clients’ lives better and easier Make a real difference in the lives of people all over the UK All completely FREE!
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Imperial Hotel
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OTAC Kent
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Weetwood Hall Hotel
The Spa Hotel
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Wednesday 13th June
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Wednesday 11 July
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For more details on your local event, just head over to our website
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DISABILITY CONFIDENT
Removing to It’s been just over a year since the government’s Disability Confident scheme launched, encouraging employers to up their game and modify their policies to make their business more inclusive. So how’s it gone so far? We’ve been finding out
L
ooking for a job when you have a disability can be daunting. Statistically, disabled people are less likely to be in employment than nondisabled people, and with recent research from Leonard Cheshire Disability showing that one in five employers admit that they would be reluctant to hire a disabled person, it can feel as though the odds are against you in the world of work. Which is why the government launched the Disability Confident scheme. Disability Confident is designed to encourage and help employers to recruit and retain disabled people and people with longterm health conditions. “We introduced Disability Confident to create a business-led scheme that puts employers firmly at the centre of a movement which aims to increase employment opportunities for disabled people,” explains Sarah Newton MP, Minister of State for Disabled People, Health and Work. “The scheme has three levels, and an employer will complete one level before moving on to the next.”
to become Disability Confident. At present, more than half of workplaces are missing out on vital talent and skills as they are excluding disabled people in the recruitment process – and disabled people are two times more likely to be unemployed than non-disabled people. While disabled people have made huge progress in the world of work in the last couple of decades, it still isn’t good enough – they still have to apply for 60% more jobs than non-disabled people to get an interview, and there are 1 million disabled people who want to work and are able to, but are currently unemployed. Disability Confident hopes to challenge this by changing the thinking of recruiters. The new scheme was launched in November 2016, and over 5,500 employers have signed up so far – and this number is growing week on week. Those signed up include The Clear Company, Ambitious about Autism, Guide Dogs, Channel 4, various NHS trusts, and all government departments – which have all achieved Leader status.
LEVELS The levels are: Disability Confident Committed, where the employer will identify one thing that they can do that will make a difference for disabled people; Disability Confident Employer, where they must demonstrate that they are actively looking to attract and recruit disabled people, and that they offer flexibility when assessing candidates; and Disability Confident Leader, where they put their self-assessment up for external challenge, and demonstrate leadership by encouraging and supporting other employers in their industry or community
REMOVING BARRIERS “The scheme aims to challenge attitudes towards disability and to remove barriers faced by disabled people and those with long-term health conditions,” says the Minister. “I’m determined to ensure that disabled people have the opportunity to fulfil their potential and realise their aspirations. The government has set out an ambitious plan to see 1 million more disabled people in work over the next 10 years, and the Disability Confident scheme will help us to achieve that goal. “Looking forward, there is also an exciting range of new initiatives which
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were announced in November when we published ‘Improving Lives: The Future of Work, Health and Disability’, such as employment research pilots and an enhanced training programme for Jobcentre work coaches to help them work with people with mental health issues. Creating the culture change that’s needed to break down barriers for disabled people is not something that employers, or government, can achieve alone. That’s why we are working with the third sector, voluntary organisations, businesses, health professionals and employers to change the face of disability employment.” The year since the scheme’s launch has been very successful, with more and more employers making it to Leader level. One of the main aims of the scheme is to showcase a commitment to inclusive
The scheme aims to challenge attitudes towards disability and to remove barriers faced by disabled people and those with long-term health conditions Sarah Newton MP, Minister for Disabled People
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EMPLOYMENT AND EDUCATION
practices – and reassure disabled jobseekers that employers are going the extra mile to make sure that their needs are met, and that they’ll do their bit to help you perform to the best of your ability in work too. CHALLENGE It also works to challenge many misconceptions that employers continue to have around disability – that disabled people will be too expensive to employ, that they’ll be off sick a lot, that they’re more hassle than they’re worth. Instead, it encourages employers to recognise an entirely new pool of talent with skills and life experience that make a great addition to any team. “The scheme makes a difference to disabled people by sending a powerful message to potential employees that they
will get the support they need to thrive in the workplace,” adds Sarah. “Disability Confident can help improve employee morale by demonstrating fair treatment of all employees. It also helps employers build a positive reputation within their networks and communities, so it’s a winwin situation for everyone.” After a successful first year, the Department for Work and Pensions have big plans for the scheme. First of all, they’re keen to scale it up, and encourage more employers to sign up and work their way through the different levels. They’re also keen for public sector employers to lead the way, with targets for all local authorities, police, fire services and NHS trusts to get on board. “We want to turn scheme sign-ups into real opportunities for disabled people,” adds Sarah. “And we are working with
employers to ensure they offer more opportunities, such as apprenticeships and work experience.” Disability Confident might not guarantee a job – but it is definitely changing the mind set of employers, and working towards a more diverse, inclusive labour market. So look out for the Disability Confident mark next time you’re job-hunting – it could be the gateway to a supportive, successful new role.
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FIND OUT MORE
You can find out more about the Disability Confident scheme, and check out the full list of employers, at disabilityconfident. campaign.gov.uk
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EMPLOYMENT AND EDUCATION
BIG IN BUSINESS When Hannah Chamberlain entered the Stelios Award for Disabled Entrepreneurs in the UK last year, she had no idea she’d end up scooping the £30,000 prize money – and it’s going to make a huge difference to her business, Mental Snapp. We caught up with the business owner to find out more about her innovative mental health management tool
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s a filmmaker, Hannah Chamberlain strongly believes in the power of film and story telling. When she was diagnosed with bipolar disorder, that power became even more prevalent. “In mental health – and this is probably a pan-disability thing actually – you’re documented a lot by other people, and your story is told on official records,” she explains. “To have a record written by someone else seems wrong. I wanted to tell my own story [on film], and ended up helping other people to tell their stories. I’ve seen the therapeutic impact of that.” OWN TERMS Mental Snapp is an app which lets people record video diaries to help people manage their mental health. On the platform, they can rate their mood, note any issues, and have a record of it all – on their own terms. They can either keep this for themselves, or use it when speaking with health professionals to help their treatment. “Mental health solutions like mental health services or therapy are offered to us like they’re long-term solution, but they’re not actually,” Hannah says. “They’re short-term interventions – that’s what they
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should be. The good thing about therapy read out the names, and it got down to the is that someone’s there for you – but in last two – then it was me. It was amazing – actual fact, you need to learn to be there really amazing.” for yourself. You need to reconnect and become your own best friend again. I think TAKE THE PLUNGE the reason why Mental Snapp can offer that Hannah says that, with her mental health, is not the product – the product is a means being her own boss suits her down to the to get there. It’s about confidence and ground as it gives her more control and being kind to yourself, those are the things freedom – and she’d actively encourage that we can help people to do.” anyone with a good idea to take the plunge In November, Hannah and Mental Snapp and get into business themselves. won the top prize in the Stelios Award for “Ideas have currency,” she enthuses. Disabled Entrepreneurs in the UK, a “What you need to do is mine the joint venture from easyJet founder currency of your idea and sell it. Stelios Haji-Ioannou’s Stelios You are unique, and have come Foundation and Leonard up with an idea that only Find out more Cheshire Disability. It you could have thought of. about Mental Snapp recognises the achievements It’s a case of really drilling at www.mental of disabled business owners, down into that to find what snapp.com with four finalists scooping motivates you. Once you find £10,000, and an overall what motivates you, you’ll go winner taking £30,000 to further and go, and really succeed.” develop their business. “At the awards ceremony, I realised how strong the competition was – I’d i MORE INFORMATION convinced myself I wasn’t going to win,” Read all about the finalists at this year’s Hannah recalls. “I knocked back my Stelios Award at www.leonardcheshire. prosecco and thought, ‘Thank goodness I org/stelios don’t have to give a speech!’ When Stelios
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NHS Greater Glasgow and Clyde is the largest health board and provider of healthcare in Scotland and one of the largest within the UK. Alongside career opportunities in the nursing and medical professions, we offer roles within administration, facilities, estates, allied health professions, IT and healthcare sciences. These positions are located in hospitals, health centre clinics, pharmacies, as well as dental, GP and optical practices throughout Glasgow and Clyde. Hundreds of outstanding opportunities within our Board are advertised each month. As a Disability Confident Employer we operate a Guaranteed Interview Scheme for disabled applicants who meet the minimum selection criteria. Over the past few years, we have successfully recruited over 100 Modern Apprentices, enabling us to continue to deliver high quality healthcare.
At Registers of Scotland, we strive to ensure that all our colleagues work in an inclusive environment which bring their different knowledge, experiences and perspectives together to ensure we are at our creative best to serve the people of Scotland. For info on our equality, diversity and wellbeing activities for 2018 visit ros.gov.uk/enable
Information about working with us can be found at: www.nhsggc.org.uk
ITV is the biggest commercial television network in the UK and behind every famous face, there are hundreds of others, all doing their bit to make things happen. We love telly, we’re passionate about content and most importantly we understand our audiences. As a growing international company, we’re commercially minded and have a global focus. We’re all about pushing the boundaries and being innovative. We are always looking for new talent. We have a range of great opportunities from Finance, Technology, News, Global Entertainment, Commercial, Marketing, Interactive, Research, Studios, Creative and much more
so whatever your interest, you’ll always be evolving and looking to the future. Just like ITV. So why not check out ITVJobs.com for our latest jobs or register via our database to create alerts so you are notified straight away when new opportunities come up. ITV is committed to increasing the diversity of its workforce and we strongly encourage applications from candidates from all backgrounds and as a Disability Confident employer we are committed to offer an interview to disabled candidates who meet the minimum criteria for the role.
itv loves celebrating individuality
www.itvjobs.com
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CLOCKING IN
MENTAL HEALTH AT WORK
Everyone has had a bad day at work – it’s part and parcel of working life. But what happens if one bad day turns into a bad week, a bad month, a break from work? We’re all talking about mental health – but how are employers supporting their staff? 78
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EMPLOYMENT AND EDUCATION
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ecent figures have revealed that 300,000 people with a long-term mental health condition lose their job each year. Similarly, statistics from leading mental health charity Mind show that 30% of staff disagreed with the statement ‘I would feel able to talk openly with my line manager if I was feeling stressed’. Most people spend the majority of their adult life in work, so keeping the work-life balance ticking over can be difficult. According to Mind, at least one in six workers is experiencing common mental health problems – and an understanding work environment is essential. That’s where Mindful Employer come into play, helping businesses support the mental wellbeing of their staff. THRIVING AT WORK “What we endeavour to do is provide employers with easier information, mental health awareness support, advice and resources, which they can then adapt and adopt within their business,” explains Richard Frost, team lead at Mindful Employer, which is run by Devon Partnership NHS Trust. Since 2004, Mindful Employer have been providing mental health awareness for businesses across the UK, and abroad, to adequately support employees. Mental health in the workplace has been a hot topic in recent years. A spotlight was truly shone on the subject when the Prime Minister commissioned an independent review of mental health in the workplace in January 2017. Findings from the report were released in October. Thriving at Work – led by Lord Dennis Stevenson and Mind chief executive Paul Farmer – investigated how employers can support their staff and what needs to be achieved to ensure members of staff with mental health issues do not lose their jobs. “We all know somebody through work, or personally through friends, who has struggled with their mental health. Most people have had their own encounter, if not personal journey themselves,” says Richard. This is why more businesses need to understand mental health issues – Mindful Employer help to do this.
How, as a manager, do you start a conversation if a member of staff comes to you for help?
Richard Frost, Mindful Employer
WORKSHOPS Since its formation, a total of 1,800 employers have signed up to Mindful Employer’s voluntary Charter for Employers who are Positive About Mental Health. Providing various training workshops, businesses that have signed up to the Charter can gain better knowledge and understanding of mental health conditions, like depression and anxiety. “The most popular one we have is a three-hour workshop specifically geared towards managers – that looks particularly at anxiety and depression, because they are the most common conditions one would find amongst a workforce,” says Richard. “It also looks a little bit at mental health in general, and it looks at having the conversation. How, as a manager, do you start a conversation if a member of staff comes to you for help?” One company who have signed up to the Mindful Employer charter is OKW Enclosures. Operations director for OKW Ian Cox was encouraged to embrace a supportive work atmosphere after losing a close friend to suicide, who had experienced a difficult period at work. “I have tried to create an open door atmosphere for my staff, so they feel they can talk to me about any situation that arises,” says Ian. “We have booklets, notices and have just signed up to the Mindful Employer Plus scheme to provide each person with a helpline option too.” CONVERSATION Being comfortable enough to speak to an employer about any difficulties you’re
facing is a challenge. Despite more and more people openly discussing their mental health, there is still a taboo around the topic. Embracing an atmosphere where people understand that their mental health is valued is the first step to creating an area where employees are confident they will get the support they need. Ian explains: “I don’t think you really know how [people] feel until a situation arises and somebody walks through your office door. By providing the awareness in the first place, at least they know that we can be a starting point for advice. Often it’s about making that first contact with someone who you hope will be supportive and understanding.” VALUE Figures from the Thriving at Work report show that poor mental health costs the UK economy between £74 billion and £99 billion a year – businesses also feel the financial burden. Despite potential loss of earnings, most organisations value their employees and want to ensure their staff are happy and healthy. “Sending people home sick and telling them to come back when they feel better doesn’t help them or you,” adds Ian. “Staying in work, even in an adjusted role, may actually be a better cure than sitting at home wondering when you’ll feel better and whether your job will still be available when you do.” Knowing your employer is backing your wellbeing can be the first step to improved health – after all, why should mental illness be treated any differently to physical illness? Further dedication to ending mental health stigma is still needed worldwide. Projects like Mindful Employer may be a small, yet significant, drop in the ocean, but it is refreshing to see businesses come forward to support their most important asset – their employees.
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FIND OUT MORE
For more information on Mindful Employer, you can visit www.mindfulemployer.net or call 01392 677 064
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enable classifieds Trevase Granary & Penblaith Barn Enjoy 5% off a 4 night midweek break quote ENMAG5 (excluding holidays)
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5* award winning barn conversions in rural Herefordshire M1 and M2 rated Sleeping up to 18 in 8 en suite bedrooms with 1 room suitable for less able guests Games room, hot tub and garden
01989 730210 www.trevasecottages.co.uk
Welcome to Beamsley Self catering cottage, set in the beautiful Yorkshire Dales with full wheelchair access.
Gaskbeg Situated on a hill farm at the gateway to the Cairngorms National Park, Allt na Criche has modern interiors and is graded assisted disabled, it also boasts excellent environmental credentials It makes a fantastic base for exploring the Highlands. Short break bookings very welcome. Lucy Grant, Gaskbeg Farm, Laggan, By Newtonmore, PH20 1BS 01528 544 336 / 07888 717 866 gaskbeg@gmail.com
www.gaskbeg.co.uk
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3 twin bedrooms - One with electric profiling bed Full kitchen with adjustable height units and hob, dishwasher, washing machine & drier Wet-room and toilet on upper floor Ground floor wheel in toilet with Closomat toilet Lounge with TV, DVD and free WIFI throughout Lift and selection of hoists & slings available. Easy parking We can also accommodate groups of up to 24 in our main centre Contact: Tel: 01756 710 255 - info@beamsleyproject.org www.beamsleyproject.org - Registered Charity 701574
21/12/2017 16:02
Treworgans
ACCESSIBLE HOLIDAY COTTAGES
IN CORNWALL
Two specially converted wheelchair accessible detached cottages sleeping 4 and 6.
• Ensuite wetrooms • Shower chairs • Air or pressure • Electric profiling mattress beds • Hoists • Local care available • Riser/recline chairs • Adapted kitchens We are only 15 mins from Truro and 30 mins from the Eden Project, making Treworgans the ideal place to explore this beautiful county.
Tudor Lodges Six award-winning fully accessible lodges set in two acres of Cornish Countryside.
Morval Looe, Cornwall PL13 1PR Tel: 01503 241290 Email: mollytudor@aol.com 01726 883240 / 07762 173860 www.treworgans.co.uk
www.tudorlodges.co.uk
Accessible, disabled-friendly, self-catering accommodation. ‘Ardglass’ 51 Forsyth Street, Hopeman, Moray IV30 5SY ENQUIRIES Pete Thoms 01343 830585 or email info@ardglasshopeman.co.uk
www.ardglasshopeman.co.uk
Tay View Lodges
Relaxing self catering holiday lodges set in some of Scotland’s finest scenery Set in spectacular Perthshire scenery, midway between Pitlochry and Dunkeld, you will find these four well equipped, spacious and comfortable lodges which are the ideal base for those looking for a self catering short break or holiday in Highland Perthshire. Sleeping up to 8 people in 4 bedrooms our lodges are perfectly suited for families and small groups.
One of our lodges (lodge Tay) is specifically set up to offer fully accessible wheelchair friendly self catering accommodation including smooth paved access direct from the 2 disabled parking bays, open plan living/dining area, fully wheelchair accessible wet room with support bars, rails, fold down wall mounted shower stool and extra wide door to 1 of the 4 bedrooms.
Tayview Lodges, Guay, Pitlochry, Perthshire PH9 0NT T: 01796 474469 • E: info@tayviewlodges.co.uk • www.tayviewlodges.co.uk
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INTERVIEW
‘I
mpossible’ is a word that often crops up when you’re disabled. Whether you’re thinking it yourself, or society’s throwing it your way, there’s so much that seems out of reach. But that’s something that Saba Salman wanted to challenge. She’s in the process of compiling a new book, Made Possible, to change attitudes towards disability. Directed for mainstream readership, Made Possible holds a world of opportunity for the public – alongside a personal connection for its creator.
CHANGING PERCEPTIONS Society plays a big part within the inspiration for Made Possible. “The social and economic context is vital. Austerity and welfare reform are hitting disabled people the hardest – it certainly feels like the right time for this book.” There are 1.5 million people in the UK who have a learning disability, and each one has a talent that may be underrepresented. Made Possible details experiences that can change opinions, and inspire a younger generation. “Public attitudes and general media coverage of learning disability means that people, like my sister, are either
Changing
ATTITUDES We all have our own unique traits and talents. However, disabled people often have their skills ignored – until now. We find out how social affairs journalist Saba Salman is working to break down barriers with her new project seen as superheroes or scroungers; celebrated in a patronising way for their achievements, or treated as a burden on the state,” explains Saba. “Made Possible will shatter some very lazy stereotypes. The book’s contributors will also shift attitudes by defining what success means to them, instead of having this judged for them.” Currently in the writing process, Made Possible does not yet have a release date, but the excitement is building for the finished product. Success is different for everyone, and with this exciting new book, the learning disabled community will have the opportunity to revolutionise thinking.
Special offer for Enable readers Pre-order Made Possible and have your name listed as a supporter in the back of the book. Enter enable10 at the checkout before 1 March for 10% off your order.
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FIND OUT MORE
You can follow the progress of Made Possible and pre-order your copy at www.unbound.com/books/ made-possible
PIC: © ROB GOULD
TRAILBLAZERS “The main inspiration for Made Possible is my sister, Raana, who has the learning disability fragile x syndrome. I find it incredibly frustrating, for example, that while Raana’s friends, family and support staff define her by what she can do and what she has the potential to achieve – society labels her in terms of her diagnosis and support needs,” explains Saba. Raana is an extremely talented artist and her work has recently been selected to represent this year’s Centre for Disability Research conference. Her skills and passion come before, and beyond, her disability. This is the main concept for Made Possible, which is a collection of essays drawn from Saba’s connections. “Through my work, I’ve had the opportunity to meet some fascinating and determined people who happen to have learning disabilities. They include trailblazers in campaigning and the arts,” says Saba. “I’ve always thought that their stories would have more impact if they were told in their own words – and at more length than in a regular article.”
Made Possible aims to change the narrative on learning disability
You can find our full interview with Saba over on the website, www.enablemagazine.co.uk 82
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✔ Fully insured for two drivers
Advance Payment* on the Motability Scheme
✔ Servicing, maintenance
and repair included
✔ Full breakdown assistance ✔ Tyre replacement and
windscreen repair included
EXPLORE MORE. ENJOY MORE. Visit: toyota.co.uk/motability for more information
C-HR Icon 5 door Coupe FWD 1.2T VVT-i Manual. Official Fuel Consumption Figures in mpg (l/100km): Urban 38.1 (7.4), Extra Urban 55.4 (5.1), Combined 47.8 (5.9). CO2 Emissions 135g/km. All mpg and CO2 figures quoted are sourced from official EU regulated laboratory test results. These are provided to allow comparisons between vehicles and may not reflect your actual driving experience. *Model shown is C-HR Icon 5 door Coupe FWD 1.2 VVT-i Manual at £195 Advance Payment. Subject to availability. Available as part of the Motability Contract Hire Scheme. Please note that a total of 60,000 miles over three years are allowed on the Motability Contract Hire Scheme. Off er valid between 1st January and 31st March 2018. Motability Scheme vehicles are leased to customers by Motability Operations Limited (Registered Company No. 1373876), City Gate House, 22 Southwark Bridge Road, London, SE1 9HB. To qualify you must be in receipt of the Higher Rate Mobility Component of Disability Living Allowance (DLA), the Enhanced Rate Mobility Component of Personal Independence Payment (PIP), the War Pensioners’ Mobility Supplement (WPMS) or the Armed Forces Independence Payment (AFIP) and applications must be made with participating dealers between 1st January and 31st March 2018. Prices are correct at time of print, are subject to availability and may change.
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