Enable May / June 2019

A pair of tickets for MARRIED TO ALZHEIMER’S Latitude Festival Tony Booth’s wife, Steph speaks about his journey enablemagazine.co.uk | May / June 2019

The UK’s leading disability and lifestyle magazine

THE REALITY OF

CARE How can the government better support our unpaid carers?

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26/04/2019 11:02

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Welcome Spring into the May/June issue of Enable!

The UK’s leading disability and lifestyle magazine

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EDITOR’S PICKS...

18 TRUST IN PIP? It’s no secret that PIP is failing the disabled community, so, we discover the real impact mistrust in PIP is having for people living with disabilities.

32 TIME TO TIE THE KNOT One newlywed shares her journey down the aisle without the help of disabled specific wedding planners and challenges the distinctive gap in the market.

69 THE PERFECT MATCH Could you open the doors to a child or young person in need?

We speak to a foster carer doing just that for a disabled child.

id you know that seven million people in the UK are carers? That’s one in ten people! To celebrate Carers Week (taking place from 10–16 June) we take a look at the reality of care.

On page 10 we sat down with Steph Booth to discuss her journey caring for her husband, actor and campaigner, Tony Booth. For the last ten years of their relationship, Steph cared for Tony as he slowly deteriorated from symptoms of dementia. A challenging illness to live with – and care for – Steph opened the door to their relationship together and shines a light on life with dementia.

Being a carer has its own challenges, on page 13, we ask what the government needs to do to better support unpaid carers. Watching someone you love deteriorate as you care for them is heart-breaking, but there are charities out there providing support and guidance. Former Strictly Come Dancing contestant Russell Grant chats to us about how he is helping people with dementia dance.

Similarly, we investigate the financial and emotional impact PIP is having in the community. In March Amber Rudd announced a reform in PIP assessments for elderly disabled people. This was a fantastic step forward for many, however, many are still left in the dark. We find out why.

It is important for us at Enable to know what our readers are experiencing. How would you like to see PIP assessments change? Let me know by emailing editor@dcpublishing.co.uk Now, it’s time to sit back, relax and enjoy the Get in touch read until next issue. editor@enablemagazine.co.uk facebook.com/enablemagazine

Lorne Gillies, Editor

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PUBLISHER Denise Connelly denise@dcpublishing.co.uk EDITOR Lorne Gillies lorne.gillies@dcpublishing.co.uk STAFF WRITERS Emma Storr emma.storr@dcpublishing.co.uk Saskia Harper saskia.harper@dcpublishing.co.uk EDITORIAL CONTRIBUTORS Tim Rushby-Smith Alisdair Suttie DESIGN AND PRODUCTION Lucy Baillie lucy.baillie@dcpublishing.co.uk PRODUCTION ASSISTANT Lynsay McGowan lynsay.mcgowan@dcpublishing.co.uk SALES Marian Mathieson marian.mathieson@dcpublishing.co.uk

Behind the scenes

ENABLE MAGAZINE www.enablemagazine.co.uk

EXHIBITION TIME

Did you enjoy the 45th Naidex?

We certainly loved meeting all of you at the event to hear your stories.

PIC: © BBC PICTURES

COVER PRICE £3.00

DC Publishing Ltd, 198 Bath Street, Glasgow, G2 4HG Tel: 0844 249 9007

ACTION ON DEMENTIA

We can’t wait to watch actress Vicky McClure’s documentary: Our Dementia Choir. We’ve been looking at the impact of music on dementia over on page 21.

ONLINE

As always, make sure to visit our website for the latest exclusive interviews, disability news, and reviews. Top read: our interview with producer Celestine Fraser of new BBC documentary, ill, actually.

©DC Publishing Ltd 2019. All rights reserved. No part of this publication may be reproduced or used in any way without prior written permission from the publisher. The views expressed in this magazine are not necessarily those of DC Publishing Ltd. The publisher takes no responsibility for claims made by advertisers within the publication. Every effort has been made to ensure that information is accurate; while dates and prices are correct at time of going to print, DC Publishing Ltd takes no responsibility for omissions and errors.

WIN

We’re giving away three pairs of Latitude Festival tickets on page 41!

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What’s inside

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May / June 2019

Interview

10 MARRIED TO ALZHEIMER’S Steph Booth opens up about her relationship caring for her husband, Tony as he lived with dementia.

Voices

29 BUCKLE UP Columnist Tim Rushby-Smith writes about the world of competitive disability sports.

80 RIDING WITHOUT LIMITS Josh Patterson chats journeying from John O’Groats to Land’s End. 82 MY AUTISTIC BIG BROTHER AND ME Mikey Kay speaks about his emotional documentary.

Spotlight

18 TRUST IN PIP? Faith in the benefits system is at an all-time low, we investigate why the trust has been lost.

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30 CHANGING PERCEPTIONS WITH COMMUNITY This Learning Disability Week, community is at the heart of awareness.

48 KEY TO COME HOME How could supported living improve the lives of disabled people?

69 THE PERFECT MATCH Fostering is an enriching experience for everyone.

One foster carer shares her experiences.

Health

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26 LIFTING THE VEIL ON BODY IMAGE ISSUES Negative body image can seriously impact our mental health. We look at the campaign improving your confidence.

37 SUMMER STROLLS Get active this summer with accessible walking trails throughout the UK.

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32 Care

13 THE REALITY OF CARE Care is never linear, and with calls for more financial support, we look at care below the surface.

16 YOUNG MINDS: EXPLAINING DISABILITY Understanding disability can be challenging for children and young people. Starting a conversation is the first step to increased knowledge.

21 MAKING MEMORIES WITH MUSIC MIRRORS Find out how music and dance can help people living with dementia.

Life

24 SUNFLOWER SHOPPING AT SAINSBURY’S Discover how the sunflower lanyard is improving accessible shopping on the high street.

32 TIME TO TIE THE KNOT Arranging a wedding with a disability can cause problems. One bride takes us down the aisle.

35 CELEBRATING DIFFERENCES WITH LOVE4LIFE Love4Life is helping people build confidence and make friendships.

42 TICKET TO INCLUSIVE FESTIVALS Jump into the crowd as more festivals become accessibly aware.

45 EUROPEAN ESCAPES Pack your bags: there’s a world waiting to be explored.

51 THE DIARY The must attend events this May/June.

59 PRODUCT ROUNDUP A spotlight on the newest products this spring season.

Sport

65 CALLING ALL SUPERHEROES Ahead of this year’s Superhero Series we chat with the newly announced team captains.

Motoring

53 IN THE FAST LANE Team BRIT is changing the face of disability motorsports.

56 REVIEW: MG ZS Alisdair Suttie gets behind the wheel of the MG ZS.

Employment

72 RIDING THE RAILS TO YOUR NEW CAREER We spotlight Transport for London’s Steps into Work scheme.

74 THE LINE OF DUTY One police constable shares how to join the force with a disability.

Education

77 AN INCLUSIVE FUTURE AT WORK The working environment is a hub of progression – how can you advance your skillset?

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News

Charity calls on social media seizure warnings

THE EPILEPSY SOCIETY HAS warned that a growing number of people have complained about experiencing seizures triggered by flashing images and videos used on social media.

Claims that cyber-bullies are posting malicious content using epilepsy related tags on social media could be triggering for the 20,000 people in the UK living

with photosensitive epilepsy. Unlike television programmes, which are regulated

by Ofcom and have to give a warning to potentially harmful images; as social media is unregulated, warnings are not given.

Calls are now being made to regulate potentially hurtful and dangerous images online and reprimand those posting intentionally malicious content.

Study finds people think they’re helping when challenging disability MORE THAN ONE IN TEN people have said they think they are helping when challenging a person who doesn’t appear to be disabled using an accessible toilet.

Charity Crohn’s and Colitis UK found that 93 per cent of people think that challenging a “healthylooking person” for using an accessible toilet means they are “standing up for the rights of disabled people.” Furthermore, 12 per cent of the public admitted they would publicly confront someone who didn’t show any visible signs of a disability.

The survey highlights the attitudes currently held when it comes to hidden disabilities. For people living with Crohn’s or ulcerative colitis – the two main forms of Inflammatory Bowel Disease (IBD) – a survey of 1,771 people found that 61 per cent had also experienced verbal and/or physical abuse for using accessible toilets.

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BILLION POUND BILL EXPECTED TO FIX FAILED BENEFITS A WARNING HAS BEEN made from MPs that a £1 billion bill could be expected to compensate vulnerable claimants who lost out on support.

Systematic errors saw claimants lose out on an estimated £340 million in support when disability payments were combined with Employment Support Allowance (ESA) in 2011.

In February of this year the Department for Work and Pensions (DWP) identified 30,000 additional cases.

Similarly, administration costs could add another £40 million to the ever-growing cost of compensation.

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WE ARE ALL MADE OF WILD.

NEW JEEP® COMPASS AND RENEGADE. BORN TO BE WILD. JEEP RANGE FROM NIL ADVANCE PAYMENT * For more information or to book a test drive visit Jeep.co.uk/motability or visit your nearest Jeep dealer

OFFICIAL FUEL CONSUMPTION FIGURES FOR THE JEEP® RANGE MPG (L/100KM) COMBINED: 48.7 (5.8) – 25.0 (11.3). CO 2 EMISSIONS: 213 – 128 G/KM. Fuel consumption figures determined on the basis of the new WLTP test procedure as per Regulation (EU) 2017/1347. CO2 figures, based on the outgoing test cycle, will be used to calculate vehicle tax on first registration. Only compare fuel consumption and CO2 figures with other cars tested to the same technical procedures. These figures may not reflect real life driving results, which will depend upon a number of factors including the accessories fitted (post-registration), variations in weather, driving styles and vehicle load. Models shown: Jeep Compass 1.4 MultiAir II 140hp Limited from £945. Jeep Renegade 1.0 120hp Longitude 4x2 from £95 Advance Payment. Standard Metallic paint is available as a no cost option on the Motability Scheme. *Advance Payments are correct at time of going to press and subject to orders being placed between 1st April and 30th June 2019. Not available in conjunction with any other offer. Terms & Conditions apply. Offer may be varied and withdrawn at any time. Subject to stock availability. These offers are valid for orders placed from 1st April to 30th June. Offers subject to change in the event of the imposition of any Brexit related tariffs. Jeep® is a registered trademark of FCA US LLC.

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25/04/2019 05/04/2019 11:36 09:34

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News

British Airways named first ‘autismfriendly’ airline NATIONAL AUTISTIC SOCIETY HAS awarded airline British Airways their industry leading Autism Friendly Award.

It is the first airline to receive the National Autistic Society’s award after the airlines efforts to tailor autistic customers’ needs. Liaising closely with the charity, British Airways worked

to enhance their in-flight services for autistic passengers – and others with hidden disabilities.

Similarly, British Airways has endorsed the hidden disability sunflower lanyard and has introduced a global campaign, Beyond Accessibility to train all staff to fully support disabled travellers.

London announced to host world para-swimming championships THE SEPTEMBER WORLD PARA-SWIMMING Championships will now be held in London after Malaysia was stripped of their hosting rights.

Malaysia would have previously hosted the Championship from 29 July, but their hosting rights were revoked after refusing to let Israelis compete.

The Championships will now be hosted at the London Aquatics Centre from 9 – 15 September. An estimated 600 athletes from 60 countries are expected to race in London, which will be the first time a global Para-swimming event has been held in the centre since the 2012 Paralympics.

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LEGO launch Braille Bricks to assist blind children LEADING TOY MANUFACTURERS, LEGO have launched their grassroot project Braille Bricks to help children learn braille.

The LEGO Foundation and LEGO Group worked with charities including the Royal National Institute of Blind People (RNIB) and Leonard Cheshire to create the bricks.

Children with visual impairments will learn braille and interact with their classmates using the bricks.

Moulded with the same number of studs used for individual letters and numbers in the braille alphabet, the bricks are an invaluable tool.

Braille Bricks will be distributed freely with LEGO collating feedback from schools and children to further adapt the product.

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25/04/2019 15:24

MADE FOR PEACE OF MIND

THE VOLVO XC40 R-DESIGN: FROM £2,899 ADVANCE PAYMENT * Experience a car that’s designed to put you first – for less. With our Motability Scheme offers, you can drive away our multi-award-winning XC40 T3 R-Design Manual with an advance payment of £2,899*. Including a comprehensive range of features, such as: Intuitive 9-inch Touch Screen | Volvo On Call Optional 360° parking camera | Optional programmable tailgate opening height Other XC40 R-Design and Inscription variants are available on Motability.

VISI T VOLVOCARS.CO.UK /MOTABILIT Y

Fuel consumption and CO2** figures for the MY20 Volvo XC40 T3 R-Design Manual, in MPG (l/100km): WLTP Combined 36.7 (7.7) – 39.8 (7.1). NEDC CO2 emissions 144g/km. Fuel consumption figures are obtained from laboratory testing intended for comparisons between vehicles and may not reflect real driving results. Figures shown are for comparability purposes; only compare fuel consumption and CO2 figures with other cars tested to the same technical procedures. These figures may not reflect real life driving results, which will depend upon a number of factors including the accessories fitted (post-registration), variations in weather, driving styles and vehicle load. **There is a new test used for fuel consumption and CO2 figures. The CO2 figures shown, however, are based on the outgoing test cycle and will be used to calculate vehicle tax on first registration. Preliminary data. Please contact your retailer for latest information. *Advance Payment of £2,899 is for the Volvo XC40 T3 R-Design Manual. Metallic Paint is included free of charge. Offer available on the Motability Contract Hire Scheme. To be eligible to join the Motability Scheme you must be in receipt of the Higher Rate Mobility Component of the Disability Living Allowance, the Enhanced Rate Mobility Component of Personal Independence Payment, War Pensioners’ Mobility Supplement or the Armed Forces Independence Payment, which will be taken in lieu of the four-weekly rental for 36 months’ duration. 60,000 mileage allowance over 3 years; excess mileage charges may apply. Offer available from 01/04/2019 to 30/06/2019 subject to availability at participating retailers. Offer not available with other promotions and may be subject to change. For full terms and conditions, visit www.motability.co.uk. Motability Contract Hire Scheme is administered by Motability Operations Limited (Registered Company No. 1373876), City Gate House, 22 Southwark Bridge Road, London SE1 9HB.

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25/04/2019 12/04/2019 11:37 12:30

STEPH BOOTH

Married to Alzheimer’s Dementia can be an isolating bubble to inhabit. Amidst the loneliness, it is important to remember the person you love is still there during the good and bad times. Steph Booth is working to change how we look at dementia with her latest novel, Married to Alzheimer’s

M

emories and experiences make us who we are. As a couple, we create memories together to share with each other and reminisce about the loving years together. However, dementia is a darkness that can steal those memories away from the person we love.

For 23 years Steph Booth was married to actor and campaigner, Tony Booth. During the last ten years of their marriage, Steph cared for Tony as he experienced dementia.

DIAGNOSIS

“We both stuck our heads in the sand and hoped it was a misdiagnosis, which I think is the reaction of most people,” remembers Steph. Tony and Steph didn’t originally let the diagnosis change their life together, but, soon dementia began to steal what the couple had together.

When coming to terms with the diagnosis, the misunderstanding of the condition and the terminology became evident.

“You don’t want that diagnosis,” continues Steph. “Certainly, Tony didn’t. He would never accept he had dementia – he would have Alzheimer’s, because it sounded like a proper disease – but he was never going to be demented.

“This is what I have heard other people say, ‘I don’t want to be described as demented.’ There are so many negative things attached to being demented and dementia that it’s hard to move on to find the positives in that kind of description.”

Even through the difficult times, Tony and Steph worked together to find the positives in their relationship and time

Steph Booth

together. And, thankfully, as Tony never forgot Steph, a sense of normalcy was imperative.

Steph adds: “We just carried on right until the end. I was determined we would maintain some kind of relationship with each other.”

NORMAL

Becoming a carer is not something one would expect in their life. Caring is different when it is your profession, or it is all you have ever known. To become a carer for a loved one or friend can change the dynamic of your time together. However, regardless of how

your relationship has changed, the joy is in remembering the happy times.

“I wish someone had told me this small, but really, really important thing: you get so caught up in the caring and routine that you start to forget why you’re together,” emphasises Steph.

“Although the man I lived with, married, and loved was disappearing and this stranger was taking his place, he was still my husband. You have to stop and think that, yes, he still needs a hug, he still needs me to touch his arm, he still needs me to look into his eyes when we’re laughing – that is really important to remember.

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interview

Dementia has got to stop being this big scary beast

LOVE

PICS: © GEORGE SKIPPER PHOTOGRAPHY

“We all need human contact, expressions of love. It’s so easy to get trapped in dementia and the wheel of care, care, care. It’s so easy to forget that you love each other… Dementia has got to stop being this big scary beast.”

In a bid to understand more about dementia and get encouragement on becoming a carer, Steph turned to memoirs to learn about other people’s experiences. But, she found those works were lacking in the real support and advice she craved.

Steph explains: “Most memoirs out there skated over the dirty bits: when someone is having a meltdown and can’t articulate why they’re having a meltdown, or even the fact that dementia isn’t doom ridden – you can still have a nice time together,” Steph points out fervently.

“I want to say that: there are actually good moments. Obviously, they do get less and less, people become more tired and less lucid, but then, every so often there is a breakthrough. For me it was like getting my Tony back.”

With the help and backing from Tony, Steph began writing their journey in a column for The Irish Times. The column garnished great success for the honest portrayal of the couple’s experiences, so much so that Tony made Steph make one final promise: to turn her column into a book.

WRITING

“When I was writing the book, it was almost as though I was writing in the third person and I was one step away from it,” explains Steph. Married to Alzheimer’s is a deep, personal insight into the life of Steph and Tony Booth.

Their time as a couple, their memories,

Steph with husband, Tony

and the impact dementia can have on an individual.

The effect wasn’t apparent during Steph and Tony’s time together. It only became clear when Steph herself read her novel.

“That’s when I sobbed,” she says.

“That’s when it all sank in. That’s when I realised the enormity of what we had gone through. It was only then that I realised how traumatic dementia is, not only for the person going through it, but for the carer as well. It is traumatic to watch someone you love just disintegrating; their personality just disintegrates in front of you.

That is really, really painful and heart breaking.”

Steph now hopes her book will shine a light on the reality of caring for dementia and help others in a similar situation. Her parting advice is: “Try not to feel guilty. I know it’s easier said than done. Just remember there was a relationship before, it has changed now, it will continue to change, but try not to feel guilty.”

Steph’s novel, Married to Alzheimer’s is now available from Penguin Books (www.penguin.co.uk) or Waterstones (www.waterstones.com) for £12.99

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Care THE REALITY OF

An estimated seven million carers in the UK provide invaluable care to their loved ones, saving the government millions of pounds annually. But what more can the government be doing to support unpaid carers? enablemagazine.co.uk

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CARE

Elaine Yates became a carer to husband Michael in 2004, after he sustained a brain injury.

“I was given the option to carry on with my career and for Michael to go into care,” remembers Elaine. “We’d only been married for nine years when he sustained his brain injury and there was no way I was going to let my husband go into care or have anybody else look after him. It wasn’t a choice really. I gave up my career, became his carer and have been ever since.”

As many carers do, Elaine experiences isolation, which has led to mental health issues in the past.

“I can’t go out or just pop over to the other side of town because I’ve got to find someone to look after him,” Elaine continues. “During my respite, I do my weekly shop; it’s very difficult to take Michael shopping. That’s not respite.

“If we go on holiday, I’m still a carer, I’m not me. The only time I feel like

To have someone to listen to you and to share that problem: it’s halved me is when Michael’s still in bed in the morning and I take my dog for a walk.

The isolation and loneliness is unreal.”

FINANCES

One of the main causes of mental health problems among carers is the stress of financial strain.

“In 2015, we were paying £5.85 a week towards his care,” explains Elaine. “Last week we got a letter to say we’d have to pay £178 a week.

After battling, it’s gone down to £99 a week. I always dread that letter dropping through the letter box. It’s quite distressing and I am frightened.

Sometimes you think ‘I’m not going to say anything’, but there are a lot of people who haven’t got a voice like I do.”

Unpaid carers save the UK government £132 billion annually: almost the same as the cost of a second NHS. “We save the government all this money by looking after people we love, but we’re not given pensions, we’re not given holidays, we’re not given anything,” says Elaine. “We’re just expected to do it – which we do – but we’re being ignored. The

Carer facts 60% of the UK population will become a carer at some point in their lives

Over 1.4 million people provide over 50 hours of unpaid care each week

Every day, 6,000 people take on a caring responsibility

72% of carers say their mental health has suffered as a result of caring

58% of carers are women; 42% are men One in five carers gives up employment to care full-time

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53% of carers have borrowed money as a result of their caring role; 23% have had to re-mortgage their house, or downsize to a smaller property

people that make decisions are not in our shoes, living our lives. They don’t understand.”

HEALTH

“When you’re helping to look after someone, it’s easy to think of yourself as doing what any family member would do, but putting others first can often mean putting your own needs second,” explains Helen Walker, the chief executive of Carers UK. “Many carers find their own health needs and relationships suffer without the right support. We want to see carer-friendly health services that help get carers connected to the support they need.

“Adequate funding and provision of care and support services are critical to supporting unpaid carers: with 1.2 million carers living in poverty, there must be better financial support.”

In 2018, the government announced the Carers Action Plan, a plan to recognise the work of unpaid carers, and provide them with the support they need, by 2020. This includes raising awareness of caring realities, improving employment opportunities, access to support for young carers and boosting access to community support.

The government is on track to deliver on the Action Plan by 2020, and are clear in their understanding of the valuable work unpaid carers do. The Action Plan is a commitment towards increased support, at a time when many carers feel undervalued.

Charities around the country also work tirelessly to provide support and advice to carers. Carers UK, Carers Trust, Age UK and Sense are just a few of the charities providing guidance.

The services unpaid carers provide the country is irreplaceable, and it is time that more is done to recognise the enormous contribution they make to society.

“There is help out there,” Elaine urges. “Find your local carers group and talk to them. Don’t be afraid to tell people how you feel, because just to talk and offload is the biggest help that anybody can give. To have someone to listen to you and to share that problem: it’s halved.”

STATISTICS FROM CARERS UK AND CARERS TRUST

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arers Week (10–16 June) celebrates all the hard work done by carers across the country, and recognises the ongoing issues faced by those who unexpectedly find themselves caring for a loved one.

A carer is someone who looks after a family member or friend who has a long-term illness, disability or mental health problem. Many have to care full-time, and as a result, have to give up working. This can lead to financial strain, isolation and can be emotionally draining.

FOR MORE INFORMATION

Carers UK www.carersuk.org Carers Trust www.carers.org Age UK www.ageuk.org.uk

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YOUNG MINDS:

Explaining disability Discussing or explaining a disability to a child or young person can seem challenging. However, having open and honest communication can help put your child’s mind at ease and increase their understanding of a condition or disability

T

he right time to start a conversation about disability with a child is unique to each family, but there are different factors to consider. Clare Kassa is chief executive at Sibs, a charity supporting siblings of disabled children and adults.

“You have to take into account their ability, age, and how they process information,” explains Clare. “We do say as a charity that early communication is good.”

COMMUNICATION

Clear and honest communication ensures your child has the correct information. “Set aside quiet time, but be ready when they have questions,” recommends Clare. “They don’t often ask when you want them to, so be prepared to make time.”

Each child will ask questions at different times, but making time to answer them ensures your child’s feelings are valued and respected, Clare says: “If they ask questions while you’re making dinner and you can’t talk let them know you’ll speak after tea.

“Parents are often taken up with their disabled child’s needs and can be busy, so set time aside with their sibling,” continues Clare. “It makes it feel special for them too, and makes sure their needs are acknowledged.”

information is appropriate.”

If you are struggling to answer your child’s questions, or are unsure of how to start the conversation, seek help from a professional. Clinicians, support workers, or an organisation that you are involved in can provide guidance.

Explaining disability to your child is essential to improving understanding, education and inclusion, but starting a conversation can be difficult. Open communication and simple facts can ensure your child feels valued and informed.

EDUCATION

Children’s understanding of a disability or condition can lead to better disability education, and in turn, inclusion. A stock of accurate information is especially helpful for children if their peers have questions.

“It can be tough if they don’t have that because there’s sadly some children who aren’t kind about disability,” expresses Clare. “You’re really giving them the tools to educate their peers, too.”

Practising questions and answers with your child at home is a great way to make sure they understand.

“A bit of roleplay can be fun,” advises Clare. “Imagine being six or seven and someone asking you difficult questions.”

“

You’re really giving them the tools to educate their peers, too

“

SUPPORT

Children often pick up information they have overheard from others, without clear communication this can lead to misinterpretation.

Some disabilities are too complex for most adults to understand, let alone children. Simple, accurate information can avoid misunderstanding that could continue into adulthood.

“Lots of siblings from a young age think that they’ll have to look after their sibling from as young as seven or eight,” explains Clare. “Those questions are in their heads, so, I think reassurances and

16

FOR MORE INFORMATION

Visit www.sibs.org.uk or www.youngsibs.org.uk for specific information for children and young people

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TRUST IN PIP? Personal Independence Payment is a benefit which, on the surface, was introduced to help the disabled community. In reality, PIP has turned into a hindrance, causing anxiety and mistrust amongst accessors and claimants 18

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spotlight

E

veryone’s experience of daily life is different; each need and adaptation is unique. For this very reason the support and assistance we require is indicative to our personal situation.

Personal Independence Payment (PIP) was originally introduced to replace Disability Living Allowance (DLA) and take into consideration the daily adjustments people require in their lives. From daily living to mobility components PIP was a benefit to support people living with a long-term illness and the disabled community.

Six years since the move from DLA to PIP, the trust in governmental support and aid from the benefits system is at an all-time low.

MISTRUST

“It can be detrimental in several ways,” explains Phillip Anderson, head of policy for the MS Society. PIP requires assessments to determine how much financial aid you may need; however, PIP assessors and assessment centres have failed the disabled community.

With continued reassessments and lengthy, complex application forms: PIP is doing more harm than good.

Phillip continues: “The assessment process is stressful, people feel they constantly need to prove that they need support. People often tell us that assessors don’t understand their condition, every time you are reassessed, you’re rolling the dice on if you get someone who really understands multiple sclerosis (MS) or understands fluctuating conditions, or what a hidden disability even means.

Trust is very low in the system.

“Waiting for the decision is also stressful. You are thinking about your life and what it will be like if you lose support, for example a Motability vehicle. People often heavily rely on this to live independently.”

We want to see the government step back and create a fair assessment process and put disabled people at the heart of the process no joke,” emphasises Rachel. “I was getting money from PIP but then, for 16 months, I was without Motability so I had to lease a car myself. I had to use all my savings for the car, and that was what I was saving for a pension.”

An experience that many people around the UK will be facing: a change in assessments has affected daily life. Having received DLA, during a reassessment in 2016 Rachel was left without the higher rate of mobility support because it was deemed she did not qualify.

“The assessment fills me with horror,” explains Rachel. “The thought of having Motability taken away from me fills me with dread. So, any assessment is stressful and it shows a total lack of understanding of what MS is.”

In March of this year Secretary of State for Work and Pensions, Amber Rudd announced that elderly disabled people would not face reassessments for their benefits. As much as this is a step in the right direction, much more still needs to change in the way in which PIP assessments are made to change an ever-growing distrust between assessors and those being assessed.

“One of the things we consistently hear from people with MS is that the understanding of MS and hidden symptoms varies widely form assessor to assessor,” adds Phillip.

In terms of MS, the PIP criteria states that anyone who can walk 20 meters unaided will not qualify for PIP. However, MS, other hidden disabilities to physical or learning disabilities differ from person to person. One criterion should not fit all disabilities.

CUTS

FAIR

Cuts in benefits can cause increased stress, mental health issues, and even aggravate symptoms. Phillip explains: “We know, in a clinical sense, that stress itself can make MS worse – it increases your likelihood of a relapse so it’s not just that it is a stressful process, it can make a very serious underlying condition worse.”

However, recent research from the MS Society has revealed changing to PIP has seen an increase in government spending. With the assistance of 1,200 respondents living with MS, the research found that government cuts would save £83.3 million over three years, the knockon taxpayer costs could reach £92.7 million.

IMPACT Phillip emphasises: “A lot of people Rachel Taylor has experienced felt their health had gotten worse and first-hand the impact that having therefore needed the NHS more than her Mobility vehicle removed can they did before. The other major cost have. Diagnosed with MS in 2002, driver is friends and family of people Rachel is dependent on her adapted with MS having to leave work or car leased from Motability, no less reduce hours to care for them more.” because she lives in a rural Alongside a lack in real HAVE area, but because of the savings, the trust and YOUR independence it provides. understanding in PIP and SAY “The process of using assessors is low amongst the How have you a zimmer frame at 51 is disabled community. been affected by PIP changes?

Let us know @EnableMagazine

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UNDERSTANDING

Phillip continues: “We want to see the government step back and create a fair assessment process and put disabled people at the heart of the process. You need to look at someone’s life instead of a random test to see if someone can walk 20 meters or not.”

Having had vital funding deducted, Rachel says: “In an ideal world I would like someone to come out and look at how I walk; to know that multiple sclerosis is a continuing debilitating condition, and know that I have some moments which are good and some bad moments. There needs to be improved understanding and trust in what I am saying.”

It is evident that PIP is failing the 13.9 million disabled people in the UK. An overhaul of the system is necessary to support people like Rachel, carers, friends and families.

Time will tell if the government listens to the experiences of the disabled community.

FOR MORE INFORMATION

MS Society www.mssociety.org.uk 0808 800 8000

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25/04/2019 15:31

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Making memories with Music Mirrors We all have that one song that fills us with joy, and transports us back in time.

Music and sound can have a powerful impact on us, and it has become the latest technique used to care for those living with dementia

M

usic and dance are well-known for boosting mood, and reducing stress and anxiety. For many, a particular song takes them back to a specific time in their childhood, or a certain dance move transports them back to their youth.

It’s understandable then, why these two hobbies have such a profound effect on those who have dementia.

Dementia is a condition that affects the brain: damaging the brain’s nerve cells, so that messages can’t be sent and received by the brain, which prevents normal bodily function. Currently, there are over 850,000 people living with dementia in the UK; a figure that’s

expected to rise to over one million by 2020.

MUSIC

Music Mirrors is a programme that uses music to help those living with dementia to retain their identity and keep their memories alive.

Users compile a list of favourite songs and sounds that remind them of specific memories from throughout their life, for example a lullaby sung by parents or the song used during the first dance at their wedding.

Alongside the list, the person should also create a set of notes with information about the importance of each sound, to be read back to them

after their dementia has progressed, to remind them about their life.

“Music means so much to many people,” explains Music Mirrors founder, Heather Edwards. “I created Music Mirrors to help people through the difficult bits of life. It’s not just for listening to music; the Music Mirror is a way for people to keep their identity by using special words or catchphrases that they used to use.”

Heather created Music Mirrors after experiencing the effects of the condition first-hand; Heather supported her father, who required dementia care, when he experienced a stroke.

“It’s like getting a torch to take into the darkness if you know you’re going

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CONNECTION

Katharine Haworth’s mother made a Music Mirror after her dementia symptoms began.

“Making a connection through words and music was something that endured throughout her illness, even in her last couple of years in the care home,” remembers Katharine. “When the carers saw the immediate positive effect of certain music on my mum’s mood, they started to make use of it in their daily routines.”

Listening to and taking part in music classes doesn’t just stimulate long-term memory: it also reduces social isolation and boosts confidence, self-esteem and quality of life.

“Her eyes would light up and she would start to sing along, full of confidence, remembering all the words,” continues Katharine. “For that moment, it was as if she knew who she was and felt connected and in control again.

“It’s like getting a

torch to take into the darkness

“

to be ill later, or it might be harder for you to communicate,” continues Heather. “When a family has dementia in it, they’ve had so much taken away from them, that you really want to give them something back.”

While a Music Mirror can bring comfort to someone with dementia, it can also be extremely rewarding for family members, to see the effects it has, but also to keep as their loved one’s legacy, after they pass.

When I saw and listened to the Music Mirror, I learnt things I’d never known about my mum’s past.”

DANCE

Music and dance go hand in hand, and both are useful when caring for those who have dementia.

Astrologer and ex-Strictly Come Dancing contestant, Russell Grant, is a dedicated campaigner for dementia awareness.

“I was a carer for my grandmother, Alice, who had Alzheimer’s,” explains Russell. “I noticed that singing, dancing and music would really cheer her up: her eyes would light up, especially if it was stuff she’d remembered, for example from the war years.”

Last year, Russell launched his own dementia support charity, Dance for Your Life, after realising the importance of dance, movement and music during his time on Strictly.

“Alzheimer’s Society, Alzheimer’s Research UK and Dementia UK

supported us, saying how music and dance are so important for the brain, mind and mobility,” says Russell. “When I work with people with dementia and Alzheimer’s I can see them light up. The music and dance give such a positive influence, and a brightness.”

Part of Russell’s goal is to bring more awareness to the condition.

“The big problem is people have nowhere to call,” he says. “Who takes care of the carer?”

“We were a bit out of our depth, and information didn’t seem to be readily available,” agrees Katharine. “But, try not to worry about the small things that go wrong, laugh at the bizarre things that happen if you can, allow the person with dementia to feel reassured and right – even if they’re not.”

Product Support

As well as different types of therapies, there are products that can help people who have dementia maintain their daily routine and independence.

The Pivotell (www.pivotell. co.uk) Advance automatic pill dispenser reminds the user to take their medication by means of an alarm and flashing light. Making the correct dose available at the correct time of day or night whilst keeping other pills locked and out of sight, the dispensers are used mainly by people with Alzheimer’s and dementia. Their use often results in improved health, more independence and a better quality of life.

FOR MORE INFORMATION

Dementia UK www.dementiauk.org Helpline: 0800 888 6678 Alzheimer’s Society www.alzheimers.org.uk Helpline: 0300 222 1122

Music Mirrors www.musicmirrors.co.uk Contact: 01603 452404

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SUNFLOWER SHOPPING AT

Sainsbury’s Last year, supermarket chain Sainsbury’s introduced sunflower lanyards: an initiative to make shopping easier for customers with hidden disabilities. We speak to Leigh, store manager at Sainsbury’s Barnstaple, where the lanyards were introduced

D

uring September 2018, the sunflower lanyard scheme was piloted at the Sainsbury’s Barnstaple store. The scheme aims to provide extra support for customers with hidden disabilities like dementia, autism, hearing and visual impairments.

Now, more than six months since the scheme was launched, the lanyards are available in 39 stores nationwide.

INCLUSIVE

The sunflower scheme is part of Sainsbury’s vision to be an inclusive retailer for both customers and employees.

Customers can pick up one of the lanyards as they enter a store to show staff members they may need extra help.

“I think colleagues have found it really valuable,” says Leigh. “It’s always great to make someone else’s life a little easier when we can.”

SUPPORT

Employees at the Barnstaple store were also given extra training to help them better support customers who are living with a hidden disability or condition, Leigh explains: “We had a session at the local hospital to help our colleagues with dementia awareness, and many colleagues also completed online training.”

The team additionally attended charity groups run by mental health charity Mind and a children’s hospice to understand more about how they can help.

Raising awareness of how the lanyards can benefit customers was a focus for Leigh and his team. “We want all our customers to feel at ease when they shop with us and our colleagues are delighted to offer extra assistance,” emphasises Leigh. “It really helps us go above and beyond.”

CONFIDENCE

Since the pilot began the lanyards have increased employees’ disability awareness and knowledge, while helping to take the stress out of shopping for customers.

Leigh recalls one customer, who is partially sighted, paying for fuel and looking for products by herself, something she hadn’t done for a long time.

“She said that once she wore the lanyard, she felt a sense of increased confidence for the first time,” remembers Leigh. “She explained to me that this may seem simple to most people, but to her these were huge steps forward.”

The lanyards are also helping to increase other customers’ understanding of hidden disabilities.

“A customer spoke to me about the experience of shopping with her two autistic children, which she previously found very difficult,” stresses Leigh.

“Since both of her children started wearing the lanyard in store, she has noticed the difference not only in colleagues offering her more support, but other customers will ask about the lanyards.”

As the scheme grows and expands across the UK, Leigh hopes more retailers will recognise the initiative and join the fight for inclusive shopping.

It’s always great to make someone else’s life a little easier when we can FOR MORE INFORMATION

To see a full list of where the lanyards are available, visit about.sainsburys.co.uk

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25/04/2019 16:07

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21/01/2019 12:06:49 25/04/2019 11:43

Lifting the veil on

Body image issues Being self-conscious about our bodies can lower self-esteem, confidence, and lead to mental health problems. This year, Mental Health Awareness Week will explore the topic of body image and how we think and feel about our bodies

G

ood mental health should be prioritised in the same way as physical health, but for this to happen there must be greater awareness, understanding, and reduced stigma around the topic.

In the UK, more than half of people with a learning disability have a mental health problem, and it is thought that almost 40 per cent of people with a physical disability or long-term health condition have mental health concerns.

In a bid to promote awareness and reduce stigma, each year the Mental Health Foundation (MHF) hosts Mental Health Awareness Week (MHAW), an opportunity to raise knowledge of mental illness, mental health problems, and inspire action to promote good mental health for all. This year MHAW takes place from 13–19 May. Campaigns like MHAW start a conversation about mental health and provide accurate information about mental illness.

BODY IMAGE

During an important week of sharing experiences, promoting education, and representing the one in five people living with mental illness, a theme is introduced for a clear focus. In previous years themes have included topics like loneliness, sleep and friendship.

Last year’s theme, stress, brought new research to light that highlighted the effect of negative body image on mental health.

It was found that almost one in every

three people have felt so stressed by body image and appearance that they felt overwhelmed or unable to cope.

Body image issues can affect anyone at any time or age, but there is still little research on the subject.

Alongside additional research, more needs to be done to create an open conversation about how we think and feel about our bodies. This year’s MHAW provides the perfect opportunity.

PERCEPTION

People from different backgrounds can experience body image issues in Emily Davison different ways. Age, gender, ethnicity, sexuality and disability can all have an invalidate mental health issues relating effect on this. to negative body image.

Emily Davison is a beauty and fashion “Sometimes people can overlook the blogger. Living with a visual impairment, fact that people with disabilities might Emily is working to reduce the stigma also have mental health issues,” around sight loss and disability. explains Emily. “Someone can “When I was growing have more than one disability up there was a very and a mental health issue standard way a disabled Mental Health might be one of them.” person looked and Awareness Week Every day disabled was portrayed,” Emily 2019 takes place people are helping to remembers. “There from 13 – 19 May change the outdated and wasn’t a lot of racial inaccurate view of disability. diversity in fashion and For Emily, social media is a beauty either, and social great platform to be open, she media wasn’t as big back says: “A lot of issues that surround then.” mental health and body image can Disabled people face unique stem from social media but, in terms challenges with regards to body image of positive body image, social media is due to discrimination and the cultural playing a big part. perception of disability. While often “It’s important to raise awareness inaccurate, these negative perceptions that in real life there’s so many shapes, of being different can exacerbate or

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sizes and different ways of being,” Emily continues. “There’s no conventional way of looking despite what the media portrays.”

These voices from the disabled community are proving that we are all equals, regardless of our ability, and deserve to treat ourselves with dignity and respect.

While not everyone has body image issues, working to change attitudes is essential to reducing stigma, Emily suggests: “Talk to people who have the same issues that can help because it’s nice to hear that you aren’t going through this in isolation, but it’s also important if you can use your experience and share that in order to help you grow.”

GET INVOLVED

You can help to reduce stigma, change attitudes and start a conversation about body image this MHAW. Getting involved can be as simple as sharing

mental health facts with a friend to hosting an event to help raise awareness.

After using the MHF website to get informed, social media is the easiest way to spread the word about MHAW. Sharing your own experiences with body image issues and how you overcame them, or just sharing information about the week can help start a discussion.

For this year’s MHAW, the MHF is using #BeBodyKind to raise awareness of body image issues. Simply post a photo of yourself on social media of a time or place when you felt comfortable in your own skin and use the hashtag.

This could be a picture of yourself or something else that reminds you of the moment.

Having a get together with family and friends is a great way to create a safe space for a discussion about mental health and show those around you that you are there to support them.

Body image issues are more than worrying about what to wear or what others will think

The easiest way to show your support is to wear a green ribbon – the international symbol for mental health awareness. By wearing a ribbon, you are showing others that you care about their mental health.

Doing your part to reduce mental health stigma and body image is as simple as starting a conversation. How will you be making a difference this Mental Health Awareness Week?

FOR MORE INFORMATION

Make sure to visit www.mentalhealth.org.uk for support and guidance, plus information on getting involved with Mental Health Awareness Week.

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Tim Rushby-Smith

Buckle up

Our columnist, Tim RushbySmith discusses finding confidence in the exhilarating sports of the day – much to the dismay of the wider community

W

hen people see a disabled driver there are comments to be expected. “You can drive yourself? Good for you!”

“How does that work, then?”

This usually comes from genuine curiosity, but reveals that wider society still has much to learn.

Recent initiatives to provide more pathways into motorsport for disabled people will no doubt help to improve understanding of disabled people getting behind the wheel.

However, there will undoubtedly be a different preconception to overcome, which usually starts with: “Isn’t that rather dangerous?”

ADAPTIVE

In my case this has been applied to basketball, abseiling, waterskiing, handcycling, chopping wood, going down a few stairs, and numerous other activities. Obviously, as a survivor of an ‘it’ll never happen to me’ accident – I fell from a tree and broke my spine – I have rather undermined people’s confidence in my ‘it’ll be fine’ response.

However, this idea that disabled people should never be exposed to any kind of risk is widespread.

RISK

Wheelchair rugby, for example, always elicits the ‘that looks so dangerous’ response. To be fair, in the case of wheelchair rugby, it is probably justified.

Having spoken with a number of wheelchair rugby players over the years, many have said that the danger was kind of the point.

Rehab times for tetraplegics can be up to a year, during which time they are rarely alone, and often

have to face the difficult prospect of a life where even personal care will require assistance.

For many, there is a frustration that comes from feeling like they are wrapped in cotton wool.

CONFIDENT

I remember talking with former GB wheelchair rugby captain Steve Brown, who was a fellow patient when I was in Stoke Mandeville, and he described the first time he saw wheelchair rugby.

“There were people trying to knock each other out of their wheelchairs, shouting, swearing and arguing. There was a canyon between where I was mentally and physically and where [the players] were,” explained Steve. “A lot of them had similar injuries to me, some had worse, and I thought, ‘If they can be that confident, why can’t I?’ It was a real turning point.”

While some of the equipment may be different for disabled people, the desire for a bit of adrenaline is not Throughout the world, people develop a passion for activities that carry an element of risk, and while that might not be the primary reason that they are doing what they do, it’s certainly in the equation somewhere, whether it’s in the ‘because of’ or ‘despite’ category.

Then there are those pursuits that are all about the highs that come from taking a calculated risk and seeing whether you can master your fears. While some of the equipment may be different for disabled people, the desire for a bit of adrenaline is not.

Beyond The Break, by Darren Longbottom and Tim Rushby-Smith is published by Ebury Press in Australia and is available internationally as an eBook

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spotlight

CHANGING PERCEPTIONS WITH COMMUNITY Celebrating our differences is an integral part of community spirit. Coming together to advocate for change and raise awareness is what Learning Disability Week holds at its core – we found out why

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learning disability can affect how a person learns new things throughout their lifetime. From the autistic community, people with Down’s syndrome or individuals with other learning disabilities: everyone’s experiences are unique. This is to be celebrated.

During Learning Disability Week (taking place from 13–19 May in Scotland and 17–23 June across the UK) people living with a learning disability, family, friends, and professionals come together to advocate change or raise awareness.

And community is an area of focus this Learning Disability Week.

BELONG

“Weeks like this always give a good focal point, and Learning Disability Week is a week that belongs to people with learning disabilities and the people who support them,” enthuses Kenneth Fleming, engagement and influencing manager for Scottish Commission for Learning Disability (SCLD).

This year’s theme, introduced

by SCLD, will be community. As a community we can all work together to get the best out of our services, be supported, and thrive regardless of our circumstances. During Learning Disability Week, SCLD are looking to promote active, connected, included communities.

Through events, such as their most recent Communi-tea event – hosted by Great British Bake Off (GBBO) winner, James Morton – SCLD are helping people with a learning disability have their voice heard.

ATTITUDES

Kenneth adds: “We want to give people a platform to share their stories; in fact, we don’t just want to raise awareness, we want to change and challenge attitudes on how people with a learning disability access services, get jobs, go

GBBO winner James Morton and SCLD memb

er

to school or college. We also want to challenge any stigma.”

It is estimated that 1.4 million people in the UK live with a learning disability. Even so, stigma and negative perceptions, or myths, surrounding learning disability still exist.

“People with learning disabilities face a number of challenges within their lives: health outcomes, ability to get a job, so, the number of people with learning disabilities in work can be a as low as seven per cent in Scotland alone,” continues Kenneth.

ACHIEVE

“Ultimately, we want to think of Learning Disability Week as not just a time to talk about people’s problems, but to talk about people’s assets,” says Kenneth.

There are many events taking place during the week, not to mention an awards ceremony to reward people or groups with learning disabilities deserving of recognition. Encouraging understanding of learning disability and appreciating what people can bring to their local community is at the heart of Learning Disability Week – and you can

get involved, too.

“We want to make people think about how welcome people with learning disabilities are in the community,” emphasises Kenneth. “Again, our main focus is to look at what people with learning disabilities can do within the community. It’s important to raise awareness and change behaviours towards learning disability.”

FOR MORE INFORMATION

Mencap www.mencap.org.uk

Scottish Commission for Learning Disability www.scld.org.uk

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Monday 13th - Sunday 19th May Find out more about Scotland’s Learning Disability Week: www.scld.co.uk Twitter: @SCLDNews Facebook: @ScotCommission Instagram: @scldnews

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Time to

Tie the knot After you’ve popped the question or said yes, the wedding excitement begins. But, it isn’t all prosecco and say yes to the dress if you’re a disabled bride. Emma Storr investigates the barriers faced by disabled people planning their big day and learns about one bride’s experience

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fter a wedding dress boutique in Bristol featured a wheelchair in their window display, the internet erupted with praise. What should have been a normal occurrence was something out of the ordinary – a story to make front page news.

The surge of responses highlighted the stigma that still exists around disabled people getting married, and the need for normalisation in order to provide accessible services.

Rosie was 25 when she was diagnosed with relapsing-remitting multiple sclerosis (MS). Just a month after her diagnosis her now-husband, Niall, proposed.

In the space of a year, Rosie went from training for a half marathon to using a wheelchair. While struggling with fatigue, muscle weakness, chronic pain and mobility issues on and off, Rosie set out to plan her perfect day.

RESEARCH

As a disabled bride there is even more to think about when planning your wedding. What will make the day easier for you should always be a priority.

As Rosie started to plan her dream wedding, she was left feeling like she had hit a wall. “I spent hours googling everything from where to source a

pretty walking stick to how to pimp my wheelchair,” remembers Rosie. “I was very upset by the lack of information out there, it made me feel invisible.”

Rosie isn’t the only disabled bride to be left frustrated, after hours of internet searches it is difficult to find anything concrete or remotely helpful for planning your wedding. “It was as though no person living with chronic pain had ever been married before,” Rosie adds.

It is important to take your unique circumstances into account.

If your condition could flare up as the wedding approaches, making adaptations can seem impossible.

“When I started planning the wedding my mobility was fine but as

“

I was very upset by the lack of information out there, it made me feel invisible

“

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enable life

time went on I accumulated further disability, I developed mobility issues and chronic pain,” recalls Rosie.

For Rosie, it was important to plan for every scenario. She liaised with her venue to add extra touches that would make the day easier for her in case she had a flare up.

PLANNING

The modern-day pressure to have the perfect Pinterest-worthy wedding is growing and this can be overwhelming. Having a disability can mean that you have less energy than the average bride, but more to worry about.

The stress of planning meant that Rosie’s flare ups became worse. “A

few months out I had an awful relapse that left me in a horrible amount of pain,” says Rosie. “We even discussed cancelling the wedding because of it.”

Rosie decided that walking down the aisle to say ‘I do’ was the only thing that mattered. The wedding went ahead, but Rosie and Niall had to get creative. “It’s amazing the ideas people can come up with,” Rosie emphasises.

“Try and talk to others living with a similar disability to yours as well, as they’ll be able to offer tips on how they coped at their own weddings.”

Despite the venue making adaptations to create Rosie’s perfect day, she still felt emotionally drained watching other brides get upset about things that could easily be fixed. Rosie and Niall often encountered venues and venders that didn’t understand why adjustments had to be made.

“This is part of a wider society issue,” explains Rosie. “Poor accessibility in so many places means people with certain disabilities aren’t able to get out and about and engage in society as equals.”

remembers Rosie. “However, what I hadn’t considered at the time as my mobility was okay, was that there was a flight of stairs into this shop.”

A month before her first dress fitting Rosie had a relapse, lost her balance and developed spasticity in her hips. “It was only then that I realised how much of an issue those stairs were going to be,” she recalls.

After her big day went off without a hitch, Rosie was relieved that she had put extra measures in place, including an afternoon power nap. Reflecting on her experience she still wonders why there is little support for disabled brides, but knows it is possible to have your dream day as a disabled bride.

YOU’RE INVITED

HERE COMES THE BRIDE

This misunderstanding continued as Rosie shopped for accessories and mobility aids.

“I had to rely on online shopping only and I really struggled finding pretty flat shoes,” Rosie recalls. “I had my heart set on wearing blue ones, but I needed shoes that were supportive and for some reason very few designers ever marry the two.”

As she started dress shopping, Rosie thought she had considered every possibility. “I had my ‘say yes to the dress’ moment in the first shop,”

If you have wedding guests with a disability it is important to take this into account when putting your plans in motion. Asking them what their requirements are will make the day more enjoyable for them and for you.

If you are attending a wedding as a guest check how accessible the venue is ahead of the day and make the happy couple aware of any adjustments they might need to make. Making travel arrangements and picking your outfit in advance will make the big day stress-free.

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enable life

Celebrating differences with

LOVE4LIFE

Friendships and fun are parts of life everyone should have access to. One charity is going the extra mile to help people build confidence, develop relationships, and has formed a second family in the process

C

reated over 10 years ago, Love4Life is a group for autistic people and people with learning disabilities to meet, make new friendships and maybe even find love.

Game nights, arts and crafts, cooking classes and first aid workshops are just a few of the exciting events run by the group, and there’s something for everyone to enjoy.

“It’s like an extended family for most people,” explains Shelley Temperley, Love4Life’s events coordinator. “Some members have said that if it wasn’t for Love4Life, they wouldn’t be going out.

It’s safe and there’s no pressure: they can just be themselves and enjoy the activities.”

Members also head out into the community together, visiting restaurants, the theatre, the cinema, bowling lanes, pubs and parties.

Members can note their interest on an app, to let the group know who is going.

Not only this, but the group also runs workshops to enhance important life skills, covering topics from money management and health and wellbeing, to travel and sex education.

Taylor Sambrook attends Love4Life, and has been a committed member since 2016.

“I wasn’t sure about it at first, because I was nervous,” admits Taylor.

“But, instantly everyone made me feel at home. The best part is making new friends and going out to fun places like the sea-life centre.”

DATING

Not only has Taylor found a group of friends she enjoys spending time with, she’s one of the many members who has used the dating service that Love4Life provides.

“I went on my first date not that long ago and we went bowling,” says Taylor.

“It just went from there really. We were chaperoned by Love4Life and it’s going well so far; we’ve been for a second date already.”

“We’ve had quite a few within the group who have gone onto date,” enthuses Shelley. “We chaperone the first three dates in the background.

After the three dates, if they want to carry on seeing one another and they’re happy with how the relationship is going, it’s up to them to arrange. It’s really lovely, I love being a part of it.

It makes a difference to people’s lives and ensures that they feel part of something.”

FAMILY

Love4Life recently reached the 100 members milestone, and is always

PIC: © FITZROY

FUN

“

It’s wonderful to see the members’ confidence and social skills grow

“

looking for more people to join their crew.

“People feel that they’re accepted and part of it from day one and it’s a journey for people to be on,” adds Shelley. “It’s wonderful to see the members’ confidence and social skills grow.”

“Come along and just be yourself and be confident,” urges Taylor. “We’re like a second family.”

For more information about how you can join Love4Life, visit www.fitzroy.org/love4life enablemagazine.co.uk

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SUMMER

Strolls

Regardless if you’re a beach babe, forest fairy or prefer a stroll round the local park, there are accessible trails all across the UK, which are just begging to be explored this summer

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ith the sun on your back, fresh air in your lungs and sun cream in your bag – just in case – summer is well and truly here, and we hope it’s here to stay.

We’ve rounded up the best of Britain’s accessible outdoor activities, to ensure you can make the most of the warmer months. After all, May is National Walking Month so get those walking shoes on.

FOREST Sometimes, a peaceful walk through the forest is exactly what we need to revitalise and lift our spirits.

Made up of 3,500 acres of stunning woodland scenery, Haldon Forest Park is just a 15-minute drive outside of Exeter, and is fully accessible.

The forest has four different walking trails for different abilities, Go Ape facilities, and a café, which has accessible toilets and accessible parking. It’s also assistance dog-friendly.

Both the Discovery Trail and the Mamhead Trail are rated for all abilities, making them suitable for wheelchairs and buggies. The paths are wellsurfaced, with regular resting areas at scenic points throughout the walk.

However, if you’d like to try one of the other trails, all-terrain scooters are available to rent.

Keep an eye out for birds of prey, creepy crawlies, rabbits and deer on your wander.

BEACHES Who doesn’t love a brisk jaunt along the coastline of Britain? Breathe some sea air into your lungs and admire the views from the best accessible coastal paths across the country.

Poldark fans can take a trip to the Tin Coast near Penzance, to take in the breath-taking scenery for themselves, which make up a World Heritage Site. Walk the route between Levant Mine and The Count House at Botallack along the west coast. Each venue has one all-terrain mobility scooter, which you can rent for £2.50, however you can use your own wheelchair, should you prefer.

North Devon is home to the number one rated beach in the UK, Woolacombe. Meander through the sand dunes with an ice cream in hand. For this route, it is essential to rent a tramper, and advance booking is strongly advised. Call 01271 870 553 to make a booking.

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COUNTRY Enjoy the smells and sights of the rural British countryside, on a brisk three-mile walk through the Yorkshire moors. Start off at the Sutton Bank National Park Centre, in North York Moors National Park. You can walk all the way to the Kilburn White Horse; one of North Yorkshire’s most iconic landmarks.

The shape of the horse was cut into limestone in 1857, by a schoolmaster and his pupils, and is one of the most glorious views the UK has to offer. 24 people can fit into the grassy patch that makes up the horse’s eye, however walking on the horse is prohibited, to prevent erosion. The path is fully wheelchair accessible, and there are mobility scooters available to borrow.

There’s also a brand-new wheelchair accessible viewing point along the trail, to offer the best views of the moor.

GREEN FINGERS Why not spend a bit of time sprucing up your own garden, and create your personal back yard paradise?

Getting in amongst the leafy greens of your garden is proven to strengthen bones, muscles and joints. It can also be beneficial for people who have breathing problems, such as asthma, as plants clean the air we breathe.

Not only does a blooming garden have wonderful physical benefits, it can also do wonders for your mental health.

Gardening can provide an escape from the worries of daily life, and it’s well documented that a good connection

with nature can help improve mood and ease stresses.

Gardening is also a great method of mild exercise: it’s estimated that a threehour gardening session can burn as many calories as an hour at the gym: we know what we’d rather do. The physical and emotional benefits of gardening are overwhelming, and you don’t even need to step outside of your own home to feel them.

Not only will gardening improve your mood and act as a physical therapy, it will also ensure you get outside and your garden gets some TLC, too.

PARKS The UK is well-known for its luscious green spaces in the most unlikely of places. Parks are a great option, as they provide fun for all the family, with playgrounds and ice cream for the kids, while you can enjoy a quiet moment at a picnic bench, or a stroll through the gardens.

Nestled into the River Dee, Duthie Park in Aberdeen has everything you could ever want for a fun day out with kids. Swing from the monkey bars and tumble-down slides at one of two playparks; take a walk through the flowers, and pay a visit to the infamous McPuddock frog in the Winter Gardens. You can also meander along the river, for picturesque views.

In Glasgow, there’s no shortage of green space – it’s called Dear Green Place for a reason – to take the dogs for a walk or get a breath of fresh air.

Explore the Botanic Gardens in all its glory, with its iconic glasshouses full of plants from all around the world. If you’re a keen dogspotter, head to Kelvingrove Park and watch the fluffy four-legged friends enjoy themselves.

FOR MORE INFORMATION

Discover accessible trails throughout the UK by visiting www.walkswithwheelchairs.com

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Healthcare

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Robyn / Bombay Bicycle Club / Groove Armada Tom Odell / Caravan Palace / Tom Grennan Freya Ridings / Ólafur Arnalds / George FitzGerald Eats Everything / Honey Dijon / Erol Alkan The Cause present Adonis & Tribes

SOAK / Blanco White / Durand Jones & The Indications Ronnie Scott’s presents: Incognito Ata Kak (Awesome Tapes from Africa) Beating Heart / Cykada Jurassic 5’s Soup presents: The Fullee Love Collective The Arts

Letters Live

The Royal Academy of Arts / Southbank Centre Roundhouse / The RSA / Sadler’s Wells / Rambert2 Royal Geographical Society Wilderness Orchestra / Sunday Papers Live Hip Hop Karaoke / 5x15 Banquets and Feasting

James Knappett / Yossi Elad / Tom Aikens Angela Hartnett’s Café Murano / Petersham Nurseries Josh Katz x Woodfired Canteen Nieves Barragán / Dan Smith / Neil Borthwick / Tom Brown Patty & Bun The Wilderness

The Lakeside Spa / Yoga & Meditation / Wild Swimming The Great Banana Boat Race / The Night Games Climbing Wall / Horse Riding Foraging & Aromatherapy Workshops / The Greencrafts Village / Hunter Gather Cook Tai Chi / Paddleboard Yoga / Frame Rave Midnight Runners

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enable competition

WIN LATITUDE A PAIR OF TICKETS TO

FESTIVAL

T

We’re giving three Enable readers the chance to win a pair of tickets to the iconic Latitude Festival this summer

he multi-award-winning Latitude festival returns to the stunning grounds of Henham Park, Suffolk, on 18–21 July 2019 with George Ezra, Snow Patrol, Lana Del Rey, Underworld, Jason Manford, and Michelle Wolf topping the eclectic bill of music and arts, plus foodie feasts and family fun, this is the definitive destination for discovery.

In 2018 Latitude achieved a Silver Award for Access from Attitude is Everything, who the Latitude Disabled Access Team work closely with to ensure that disabled customers can attend festivals and have a relaxed, enjoyable experience from purchasing a ticket to attending the festival.

And, this year, we’re giving you the opportunity to go along!

HOW TO ENTER

To be in with a chance of winning a pair of the hottest festival tickets this summer, simply send your name and contact details to competitions@dcpublishing.co.uk quoting ‘LATITUDE’. Or enter online at www.enablemagazine.co.uk/Latitude All entries must be received by Monday 27 May. Good luck!

TERMS AND CONDITIONS: All entries must be received by Monday 27 May 2019. Prize is one pair of Latitude Festival tickets for dates 18 to 21 July 2019. The tickets provided will be standard camping tickets and will not include camping equipment, guest campsite etc.

Parking is free. Tickets do not include travel to and from the festival. Tickets do not include Access Facilities. If you are a ticket winner, Enable will pass your details onto a member of the Latitude team at Festival Republic who will contact you with details on how to apply for Access on their website. If you require a PA (Personal Assistant) your second ticket will need to be used by them. PA tickets are only free with a fully paid, adult camping ticket. Prize is non-transferable. The publisher’s decision is final.

Get all the exciting details online at www.enablemagazine.co.uk enablemagazine.co.uk

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TICKET TO INCLUSIVE FESTIVALS The iconic fields of Glastonbury’s Worthy Farm to the metal acts descending on Download: festival season is almost upon us. With the thrill of seeing your favourite acts perform live comes the anxiety of accessibility on site. Attitude is Everything is one charity working to make festivals inclusive

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s the lights go down and the roar of the crowd sends shivers down your spine, your adrenaline is pulsing and your favourite band takes the stage, it is an experience unlike any other. Festivals are a rite of passage for both young and old; a community of unknown friends all out to have the best time ever.

However, for people living with a disability, attending a festival might seem harder – or even impossible.

“I had experiences where friends were going to Glastonbury or Reading or other festivals and I didn’t feel able to go because I didn’t feel they would be able to meet my needs. And it’s utterly devastating when your friends are off having these amazing experiences and you’re stuck at home in front of the TV, imagining what it might be like to be there,” remembers Paul Hawkins, festivals and volunteering

manager of Attitude is Everything.

That’s why Attitude is Everything is working to promote festivals to become an inclusive, safe space. Paul continues: “It’s brilliant to now be in a position where we are working with those festivals to ensure disabled people are no longer in that position.”

INCEPTION

Attitude is Everything was originally founded by Suzanne Bull in 2000. As a disabled gig attendee, Suzanne – like many disabled music lovers before her – had many poor experiences of attending gigs or festivals.

The main reason behind a lack of accessibility in many venues was down to minimal or no understanding from music industry professionals on how to make events inclusive.

Since its inception, Attitude is Everything has worked with many leading events and festivals to make

gigs an inclusive community for everyone.

“Ultimately the whole idea of a music festival is that it is a chance for everyone in society to come together and a space where all are welcome,” emphasises Paul. “As soon as a festival starts excluding disabled people – or any other group – it goes against the entire spirit which festivals are based upon.

“It also does not make sense for music festival organisers to exclude disabled customers either. Even with the financial barriers disabled people face, UK households with a disabled person in them have a spending power of £212 billion after housing costs. And disabled people obviously do not go to events alone.”

BEST PRACTICE

On a business level, festival promoters don’t want to lose custom due to

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As soon as a festival starts excluding disabled people it goes against the entire spirit which festivals are based upon

inaccessibility. Similarly, attendees will only pay their hard-earned cash to go to an event they know will meet their needs – without any embarrassing hiccups. Working together is a pivotal step forward for both parties to enjoy the music, hilarity, and memories that come from attending a festival.

For this reason, Attitude is Everything launched their Charter of Best Practice to reward festivals doing well and support others to better understand accessibility needs. Currently gold and silver festival holders include: Download, Glastonbury, Reading and Leeds, Wireless, and Latitude; to name a few.

Paul explains: “Every festival is unique and we try to work in a way where we are clear about the barriers that need to be addressed and how to best address them. So much depends on the size of the event, the nature of the site and the resources available.”

At present, over 160 venues and festivals across the UK have got involved with Attitude is Everything’s Charter of Best Practice. Here the group provides a framework and award system from bronze to gold for an organisation’s level of accessibility. The Charter works to ensure that all aspects of making a live venue accessible are taken into consideration.

“We start off by looking at what

happens before the event even takes place,” explains Paul. “We know how important it is to many disabled people to be able to find clear access information on the website, know how to contact [organisers] to ask questions and be able to access an additional personal assistant (PA) ticket at no extra cost. These are all things we ask festivals to look at.”

ADAPTATIONS

“I think the way that festivals now feel motivated to improve their access speaks for itself,” adds Paul. “Disabled festival goers are making clear to events that they want to come and expect to be welcomed and given as good an experience as anyone else. As a result, festivals that might otherwise not have been thinking about disabled customers recognise that they have a clear need to make improvements.”

Working across a plethora of areas to ensure disabled festival and event attendees are informed, and festival staff are confident when providing accessibility support or information, Paul and the Attitude is Everything team work to ensure accessibility is evident from the very first step: purchasing tickets online.

Having clear and concise information on buying accessible tickets, getting a ticket for a PA, accessible cleaning areas, camping adaptations to being able to enjoy the music being performed – this whole view approach is important to ensure all festival attendees have the best time possible.

“Do some research, take a look at festival websites and decide which event is right for you,” advices Paul for those looking to attend their first festival. “That won’t be all about the access of course. It comes down to whether you want to camp, want a day event or a weekend event and – of course – where the bands are that you want to see.”

Finally, the most important part of a festival is to have fun – and we’re giving you the chance to join in over on page 41, with tickets for Latitude up for grabs!

FOR MORE INFORMATION

Read our full interview with Paul over on the website, www.enablemagazine.co.uk

Get gig confident with Attitude is Everything by visiting their website, www.attitudeiseverything.org.uk

enablemagazine.co.uk

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25/04/2019 12:18

EUROPEAN

escapes

enable life

Summer has almost arrived, which means it’s nearly holiday time. The perfect summer vacation doesn’t have to break the bank, we look at some of Europe’s most exciting, accessible and affordable destinations

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e all deserve some time to relax, de-stress and have fun, a summer break is the perfect opportunity.

Organising a summer holiday that suits your needs shouldn’t leave you worrying about everyday obstacles. We’re jetting off around Europe dropping you off in France, Italy, Germany and more accessible destinations along the way.

LYON

In recent years France has made accessibility and equality a key focus in its local development plan. With Roman ruins, plenty of parks and the finest French cuisine, the country’s third largest city, Lyon, is not to be missed.

Before you start exploring head to the main tourist office for helpful information. The office is accessible, has a hearing loop, specialist advisors and can provide high-contrast maps for visually impaired visitors.

The Museum Miniature and Cinema is an essential stop to see some of the world’s oldest film props. The cinematograph – the first ever film projector – was invented in Lyon in

Lyon the 1890s, making the city the perfect destination for film buffs.

Gaining the title of one of Europe’s best smart cities, in 2017 smart signage was installed on the streets. With the ability to communicate directly with visitors through a mobile app, the digital signs display directions, travel advice and the distance to the closest landmarks.

Salzburg

SALZBURG

Austria’s disability friendly city is the perfect destination to catch some summer sun, temperatures reach 25 degrees celsius throughout July and August. Spend the sunny mornings eating at one of the city’s charming cafes in the Getreidegasse, the heart of Salzburg’s Old City.

Mirabell and Hellbrunn palaces, along with Salzburg Zoo, make perfect spots to explore and discover more about Austria’s rich history. After you have toured the palace gardens, take a trip to Mozart’s birthplace. Today the place where Mozart was born in 1756 is one of the most visited museums in the country.

Don’t get on the plane home without tasting some local apple strudel and wiener schnitzel: a piece of veal coated in breadcrumbs and fried. It is written into Austrian law that it must be made of veal or it can’t use the name.

The local residents create a warm and welcoming atmosphere for all visitors.

If you have questions about visiting the city you can contact the Salzburg Office for People with Disabilities for advice and information before your visit.

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MILAN

If the local cuisine isn’t enough to attract you to Milan, the city’s dedication to making products and services accessible for all will. Since being awarded the Access City Award by the European Commission in 2016, Milan has adapted policy to make spaces inclusive for everyone.

The city has a rich heritage with plenty of historical buildings to explore, including the famous cathedral. Where older buildings are not accessible or cannot be adapted, separate entrances have been created to make the attractions accessible to all.

Known as an architecture, fashion and business city, Milan has something to interest everyone with friendly locals willing to lend a helping hand wherever you go.

Milan’s public transport makes travel both accessible and affordable with discounted fares on the metro, bus and train network. Local museums and tourist attractions offer various levels of accessibility, outlined in the Where Milan (www.wheremilan.com) accessible guide.

Milan

Germany Germany has long been known as one of Europe’s most accessible countries. Many of its cities have become finalists for the European Access City of the Year award with Berlin winning the title in 2013.

The country is dedicated to creating equal access through resources like BarrierFree Germany (www.germany.travel), the tourist board’s guide to accessible tourism.

Berlin

BERLIN

From bratwursts to the Brandenburg Gate and bears at the zoo, Berlin is bursting with culture and history. The urban city provides endless excitement with 170 museums and galleries, countless street food vendors, and a population of over three million.

The welcoming atmosphere extends further than the usual tourist spots. The city’s great train network allows you to see all of the best sites with ease. If you need assistance or advice, simply call the Deutsche Bahn’s dedicated train mobility hotline.

Have a completely stress-free trip by using the accessBerlin app, which finds the best routes through the city for you and provides information on accessible tours of key tourist spots.

MUNICH

Munich

Germany has long been known as one of Europe’s most accessible countries

Southern Germany is becoming a favourite for disabled travellers and Munich is no exception. The city’s architecture and green surroundings will have any worries slipping away.

Located in the state of Bavaria, Munich shows a different side of Germany’s heritage and culture. Head to the centrally located art district to learn about the influence of Kings and dynasties, with many museums offering tours in sign language.

Don’t leave without trying the region’s wheat beer or heading to the entrance of the English Garden where you can watch surfers on the river. The green space is the largest inner-city park in the world, and is mainly flat and level making it the perfect place for a stroll in the summer sun.

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Ever wanted to do a safari?

Didn’t think it’d be possible for a disabled traveller?

Birchcroft

near Bournemouth, Dorset

We offer bespoke safaris and tours in South Africa and Botswana

Birchcroft [sleeps 8 in 4 bedrooms] This nature lover’s secret hideaway, nestles at the end of a winding lane, surrounded by rhododendron bushes in over an acre of land and enjoys walks into the local woodland. This beautiful chalet bungalow offers Accessible accommodation with ground floor bedrooms, bathroom and wet-room and is large enough for two families.

We have just added a 4’ hospital style bed as well as an electric bed. We can arrange hoists, wheelchairs, folding walkers, etc. Hot tub hire can be arranged.

Contact us via

www.birchcroft-hideaway.co.uk

where availability and prices can be seen. Or email us at

holidayindorset@btinternet.com Tel: 07889 090 773

Le jardin de la cour Normandy

Ground floor, level access apartment suitable for ambulant disabled.

Owned by the partner of a T5 paraplegic. Sleeps 4 people in total.

Property situated in Normandy in a small town just an hour and half from the port of Cean.

Typically French with a weekly traditional market there’s a well equipped mobility shop where it’s possible to purchase or hire a range of equipment including hoists and wheelchairs.

Twenty minutes away is the Town of Vire with a water park, fabulous shopping opportunities, restaurants and vast recreational opportunities for children to enjoy.

About 30 minutes drive away is a large Zoo perfect for a family day out.

About an hour away is le Mont Saint Michel.

Normandy boasts some of the best fishing lakes and golf courses in the country, just 10 kilometres away is Lac de la Dathée where you can fish off the accessible pontoon, try out water sports or picnic for the day. The Normandy Beaches are essential for a day out, with interactive museums and events planned throughout the year.

Check out Facebook le Jardin de la cour for up coming events such as car rallies and antique markets.

10% Discount on all ferry bookings booked through Brittany Ferries.

www.lejardindelacour.com Email julia.ljdlc@aol.com

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Key to

come home Walking over the threshold of your new home is a feeling unlike any other. However, there can be some challenges along the way.

That’s where supported living can help people with learning or physical disabilities get on the property ladder

G

etting the keys to your own place is a euphoric feeling and one of sheer independence. This is your home, your space to do what you want with it.

The assistance available from supported living can help more people with learning disabilities, and physical disabilities, too, get over the threshold of their own home.

For people who may be finding it challenging to cope alone in their own home, but don’t feel residential care is right for them at this time in their life, supported living can place you in accommodation tailored to your needs.

SPECIFIC

After Daisy’s* mum discovered Sanctuary Supported Living the pair went to visit the accommodation on offer. With more than 300 services across England, including for residents with learning disabilities, Sanctuary Supported Living is providing an invaluable service. Properties are located in residential areas, near essential local amenities, plus leisure facilities and employment opportunities are also available.

On the surface, supported living can provide a haven of independence with essential care at its core.

For Daisy, she was worried about

“

I began to feel a lot happier for myself, and I am now able to do so much on my own

“

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spotlight openly and they would actually listen to me, not ignore me,” emphasises Jason. “I felt that I could always have help and answers. I began to feel a lot happier for myself, and I am now able to do so much on my own. This would not have happened if I was not able to live here.”

And Daisy agrees: “Staff have helped me to develop cooking skills, which I like because I really enjoy cooking; now I am able to cook safely. I’ve also been supported with budgeting and other living skills. Staff help me to understand my letters so that I know what’s going on with my money and other things so that I can be involved.

“There is also the chance to learn skills that other people might not be able to: like having music tutoring every other week. Being here has made my life better because I can do things that I couldn’t do before, and I like living where my friends are.”

*NAMES HAVE BEEN CHANGED TO PROTECT IDENTITIES

COMMUNITY

struggling to pay her bills and the expense outside of supported living.

And Jason* was in a similar situation: concerned about homelessness, Jason needed to find accommodation after being unable to stay with his foster parents when he turned 18 years-old.

Getting involved with supported living, Daisy and Jason not only have a roof over their heads, they are in a progressive, learning environment.

DIRECTION

Jason enthuses that staff at his Chelmsford-based service have provided invaluable guidance in his daily life. “I was able to talk to staff

Regardless of ability, we all have the right to excellent accommodation that makes us feel safe and, most importantly, at home. Being part of a community is a major aspect tied to housing, which is why Sanctuary Supported Living and other housing organisations hold this at the heart of their ethos.

Living in a community allows you to meet new people, build relationships, and develop social skills. Getting involved in groups, going to work and having your own accommodation: it’s the basis of adult life – and something that everyone strives towards.

Mark*, who is also living at a Sanctuary Supported Living service, enthuses: “This setting has helped me deal with the social aspect of living alongside others.”

With the support of the Sanctuary Supported Living team, Mark is able to use public transport to go and visit his friends and family, plus travel to his volunteering work. He is able to thrive in an independent, supported environment like all adults should be able to do.

“We also have resident and house meetings which mean that we can discuss issues about the scheme together, which is preparing us for communicating with landlords in the

future,” adds Mark. It is evident that supported housing is an essential tool for thousands of people to get the knowledge, advice and experience of running a home.

CAMPAIGN

There’s no denying that it can be stressful at times looking after your own home: paying bills on time, arranging repairs, and the general daily running of a house.

And, unfortunately, homelessness can still be an issue amongst people who are disabled.

According to Shelter, a charity working to end homelessness, and government figures, the leading cause of homelessness is the loss of a private tenancy and not being able to find new accommodation; or family and friends no longer able to accommodate an additional member in the household.

Research in 2018 also discovered that 12.3 per cent of homeless people were either autistic or had traits which fell in line with diagnostic criteria. This is an area that clearly needs significant awareness – as homelessness could have been an experience Jason faced prior to getting into supported housing.

Now, the National Autistic Society is launching a campaign to further raise awareness and education of supporting people who are autistic and homeless.

The Autism and Homelessness Toolkit will support those working in the homelessness and housing sectors to guide homeless individuals who could be, or are, on the autistic spectrum.

This facility, alongside the continued care and expertise of those working in supported living, will see more disabled people living in safe, welcoming communities and in their own home.

For anyone looking to get into supported housing, Mark advises: “You need to have a goal that you are aiming for. You also need to have targets that will get you to achieve this goal.”

FOR MORE INFORMATION To get supported housing advice and support, contact your local authority’s adult social care team and visit Sanctuary Supported Living to find out more about supported accommodation (www.sanctuary-supported-living.co.uk) or Shelter (www.shelter.org.uk)

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Our Family Support Hub is there for families caring for a seriously ill child.

Call our friendly team on 0808 8088 100 to: • • • •

Find services that can support you Talk through challenges you’re facing Join our Family Facebook Group Get involved in our wider work or share your story

Together for Short Lives is the UK’s leading charity for the 49,000 children living with life-limiting conditions, and their families.

The Original Viking Encounter www.jorvikvikingcentre.co.uk

Visit our website to find out more www.togetherforshortlives.org.uk/getsupport or email us at info@togetherforshortlives.org.uk With thanks to both Her Majesty’s Government, the Department for Digital, Culture Media and Sport and National Lottery players.

We aim to deliver a welcoming experience for visitors of all needs - visit

jorvikvikingcentre.co.uk/access for full details

Together for Short Lives is a registered charity in England and Wales (1144022) and Scotland (SC044139) and a company limited by guarantee (7783702)

DISABILITY

YOUNG PEOPLE

MENTAL HEALTH

HOMELESSNESS

At Sanctuary Supported Living we provide supported housing, move-on accommodation, CQC registered services, including residential care and nursing homes, and floating support. We specialise in services for young people, people with physical and learning disabilities, people with mental health needs and acquired brain injuries, and homeless families and individuals.

Our personalised care and support services enable people to identify their goals and aspirations, setting them on their pathway to independence.

0330 1233 247 @SancSL www.sanctuary-supported-living.co.uk

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MAY 9 MAY MENCAP PLANNING FOR THE FUTURE SEMINAR

Venue TBC, Cardiff www.mencap.org.uk

As a parent or carer of someone with a learning disability, it can be a huge worry thinking about how they’ll cope when you’re no longer able to help them.

Mencap is here to help ease your concerns, with their Planning for the Future seminars. Get advice from the charity, and from solicitors, about how you can best prepare your child, and to ensure you have peace of mind. Email willsandtrusts@mencap.org.uk for more information.

JUNE 10 AND 17 JUNE INTRODUCTION TO DANCE MOVEMENT PSYCHOTHERAPY The Friends Institute, Birmingham www.eventbrite.co.uk

For professionals working in therapy, this course is tailored for those looking to try something new, and learn about a different type of therapy. Dance movement psychotherapy (DMP) encourages clients to get creative, and can be a great method of emotional, cognitive, physical and social therapy. The session is run by Amelia Sommers, a DMP therapist who uses the arts to help women who have experienced domestic abuse or sexual exploitation.

All the latest events happening across May and June

4 MAY ACCESS ALL POETRY: ONLY AIR BOOK LAUNCH

The Poetry Café, London www.stephenlightbown.com Are you a budding poet? Join Stephen Lightbown at the launch of his first poetry collection, Only Air, where he and three other poets will share their poems and discuss accessibility in poetry. The event will be British Sign Language (BSL) interpreted and the venue is fully accessible to all. Ask professional poets all your burning questions, and get inspired to start writing your own collection of poems. You never know; you could be the next John Keats or Carol Ann Duffy.

PIC: © ALI FEWELL

thediary

enable life

21 – 22 MAY ALZHEIMER’S SOCIETY ANNUAL CONFERENCE

The Kia Oval, London www.alzheimers.org.uk

For anyone working in health or social care, the Alzheimer’s Society Annual Conference is back, to teach you everything you need to know about the disease, and how to care for those living with it. Taking place at the start of Dementia Action Week (20 – 26 May), the conference will bring speakers – including Secretary of State for Health and Social Care, Matt Hancock – from across the country to educate on a range of topics: from diagnosis and care, to new technologies and human rights.

18 JUNE BUSINESS DISABILITY FORUM FILM FESTIVAL 2019

KPMG Canary Wharf, London www.businessdisabilityforum.org.uk The Business Disability Forum is hosting their annual film festival, showcasing the winning entries from the most talented filmmakers in the industry. Films will tackle issues faced by disabled people in the workplace, and provide an honest portrayal that viewers are sure to relate to. They will also showcase the innovative solutions disabled students are coming up with to make the workplace more inclusive for all.

Pick up some popcorn and head on down.

If you have any events coming up in July and August, email us at diary@enablemagazine.co.uk with the details for inclusion in next issue’s diary enablemagazine.co.uk

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PIC: © DAVID ARCHER / KINGSIZE

In the fast lane

Buckle in for the ride of your life with the first driving academy specifically for disabled drivers. The age of inclusive motorsports is upon us and Lorne Gillies spoke to the drivers on the starting line

“D

isabled people like to have CHANGE opportunities; to be part After an injury and becoming a of something so inclusive father, Ashley wanted a change from like [motor racing] is his current career in competitive very good,” enthuses Ashley Archer a wheelchair racing. An important member of the newly introduced Team criterion for Ashley when choosing his BRIT. next venture was to feel like an equal.

Team BRIT is changing how we He explains: “In Paralympic sport look at motor sports and disability you’re still classified as a Paralympian, with the launch of the UK’s first but nobody feels that with racing racing academy tailored drivers – that’s what inspired for disabled drivers. An me.” exhilarating opportunity Soon, Team BRIT and It’s time to which will allow disabled Dave Player invited #BelieveAndAchieve people, and nonAshley down for a test in motorsport disabled participants, drive and assessment – the opportunity to with Team BRIT which he passed – and it try motor sports in a wasn’t long before Ashley safe environment with a became a member of the welcoming team. ever-growing team.

The adrenaline of pushing Driving alongside Ashley with the pedal to the metal is evident with the Team BRIT members is veteran Ash success of Team BRIT’s sister charity, Hall. Serving in the Royal Engineers KartForce. Originally set up by Dave from 2007 to 2017, it was a tour of Player – who has since founded Team Afghanistan in 2010 which put his BRIT – KartForce was introduced to future in a new direction. Ash was hit inspire veterans with disabilities, PTSD by an improvised explosive device or other mental health issues through which caused life changing injuries. The the power that comes from motorsport incident meant Ash had to have both and being in a team.

Branching out, the wider disabled his legs amputated above the knee and community can reap the rewards. he had a shattered pelvis.

TEAM

In 2017, Ash became a member of Team BRIT after he was asked to come down for a driving assessment. Soon Ash was getting on the racing tracks in an adapted Team BRIT car.

“It was amazing to be fair,” enthuses Ash. “I’ve always had a keen interest in cars, so when I got the opportunity to go racing it was pretty amazing. I had always considered myself to be a good driver, but I did some track days and when you’re put on track with 20 other cars racing at over 100 miles per hour it is a completely different feeling.”

There are many forms of motor racing from the glamorous and adrenaline inducing Formula 1 to the exhilarating world of racing sports cars: Team BRIT is challenging misconceptions that disabled drivers can’t race in the big leagues.

TECHNOLOGY

Ash continues: “I don’t think I would have tried to chase this dream if I hadn’t been given this opportunity – it would have seemed completely out of reach given my disability. Having the hand controls we do with Team BRIT makes it an even playingfield, and makes it all possible.”

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DRIVING

“I feel a lot of people with disabilities don’t know about this opportunity,” adds Ashley. But this is the chance for the disabled community and beyond to move out of the pit lane and into the driver’s seat.

“If people get to come down and see it and be in a playing field with nondisabled people: that is a big winner

for everybody,” continues Ashley. “We all want to be competitive equally, we don’t want special treatment because of our disabilities.”

With figures such as Formula 3 driver, and double amputee, Billy Monger succeeding in motorsport and advocating for change in the motoring industry for disabled drivers; alongside Nicolas Hamilton – who has a form of cerebral palsy – the chance to thrive is now.

For Ash, he would like Team BRIT to normalise disability in the racing community. “At the moment there are hoops that we have to jump through to prove that we are safe. It can become frustrating at times. For example, we have to do an exit video in every car we race in as disabled drivers; for non-disabled drivers they don’t have to do this at all – only one exit video is required to prove they can get out of the vehicle safely. I can understand why – to prove we are capable on the tracks – but to get to a place where that is normalised would be a good step.”

With more disabled drivers hitting the tracks, organisations like Team BRIT advancing driving technology, and the enthusiasm and drive from disabled people behind the wheel it won’t be long before a disabled competitive driver takes the podium. Until then, what can you do?

“Get involved with the Academy, simple as that,” concludes Ash exuberantly.

“

We all want to be competitive equally, we don’t want special treatment because of our disabilities

“

And Ashley, who was born with Athro Gryposis Multiplex Congenita – meaning he has muscle wastage from the waist down – passionately agrees: “We’ve got one of the most advanced technologies in the world, we have everything [we need] at our hands.

Our shift paddles are trigger buttons so we can go up or down in gear. What people usually use to change gear we use to accelerate. I’ve driven around in Silverstone and it was really easy; this was also the first time in ten years I used gears in a car.”

This is a literal driving force behind Team BRIT: the technology in place for all disabled drivers. Utilising the innovative adaptive technology, Team BRIT has introduced world-leading hand control technology which allows disabled drivers to safely compete.

In a bid to further encourage disabled drivers to get behind the wheel of a competitive car, the team will be sharing their new technology in the hope more motorsport teams will use the tools, too.

Ashley Archer

PICS: © DAVID ARCHER / KINGSIZE

Ash (second from left) with Nicolas Hamilton and Team BRIT drivers

FOR MORE INFORMATION Put pedal to the metal with Team BRIT track days available on 20 May (Silverstone) and 25 June (Snetterton).

For more information visit the website, www.teambrit.co.uk

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Whatever the size of your family - and budget - we have a wheelchair accessible vehicle to suit you.

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Over 45 cars available to test drive including 17 fitted with adaptations

Fully accessible indoor venue

Find out more at motability.co.uk/thebigevent or call 0800 953 7000 Please quote MO717D * To test drive the cars you must bring your full UK driving licence and sign our test drive declaration on the day. Full Terms and Conditions can be found at motability.co.uk/thebigevent. The Big Event is organised and hosted by Motability Operations Limited, which is authorised and regulated by the Financial Conduct Authority.

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MG ZS REVIEW

One of the oldest badges enters one of the newest sectors, so how does the MG ZS fare as a crossover? Alisdair Suttie gets behind the wheel

INSIDE One of the big attractions of the MG ZS is the amount of space you get in its cabin. Up front, the driver and passenger are provided with the sort of room you would expect in a car from a bigger class. There’s more than enough girth for shoulders and height for heads, and you’ll also find the seating position offers plenty of adjustment. A wide-opening door also makes it simple for the driver to slide in and out.

Step into the rear quarters and it’s more of the same with loads of space for two or even three.

Have a look in the boot and it

offers 448-litres of capacity that’s arranged in a practical, rectangular shape. It can cope with a folded wheelchair and the rear seat splits 60/40 to free up more room, though there is a step in the load floor when you tumble the back seat forward.

There’s also a small step from the load sill to cargo floor that means you need to heave weightier items up and over, which can be inconvenient, plus some of the trim feels flimsier than in many rivals’ cabins. That’s a small price to pay, however, for such commendable space at this price.

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“One of the big attractions of the MG ZS is the amount of space you get in its cabin

Enjoy better journeys on the road with the MG ZS. Available from NIL Advance Payment with Motability www.motability.co.uk

“

EQUIPMENT There’s a simple range of three trims for the ZS, comprising Explore, Excite and Exclusive. The Explore comes with 15-inch steel wheels to bely its entry-point status, but you do get electric door mirrors and remote central locking. Inside, there’s fabric upholstery, cruise control and six airbags. Move to the Excite and you gain 17-inch alloy wheels, rear parking sensors and headlights that delay switching off until you unlock the front door. Inside, the Excite has greater driver’s seat adjustment, Apple Carplay connectivity through the infotainment screen, digital radio and air conditioning. Choose the Exclusive and it offers satellite navigation, a rear parking camera and man-made leather upholstery.

DRIVING An MG badge still carries a certain expectation of a sporty drive, yet as a crossover the ZS also needs to deliver on comfort. Unfortunately, it falls between these two opposing demands to be not as good to drive as the likes of the Nissan Juke or Seat Arona. In town, the suspension’s soft settings deal with most potholes easily, but on faster routes it begins to jar at obstacles. Coupled to quite a lot of body lean in bends, even at a moderate pace, the ZS is a car that prefers sedate progress.

If you choose the 1.5-litre petrol engine, you’ll find it feels sluggish. It only comes with a five-speed manual gearbox, too, so

we’d head for the much perkier 1.0-litre turbo petrol that has a six-speed auto as standard. Even with the automatic transmission, this model feels more fun and both engines offer much the same mid-40s fuel consumption.

SUMMARY The ZS covers all of the basics at very keen prices, even in higher trims levels. If value trumps driving fun, the ZS is worth a look.

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Panova

www.panova.biz Mail@panova.biz

Smart Lift Solutions

01482 480710

WHEELCHAIR ACCESS PRODUCTS WHEELCHAIR SHOWER THRESHOLDS

6.4MM FLAT THRESHOLDS

AT ZERO SEAL SYSTEMS WE OFFER A WIDE RANGE OF THRESHOLD PRODUCTS, DEVELOPED FOR WHEELCHAIR ACCESS. THESE INCLUDE A RANGE OF 6.4MM HIGH

Your home without limitation Enjoy the feeling of getting around your home freely and easily . Take control of your surroundings and enhance your independence with Panova. Our lifts are discreet, unobtrusive and designed to match your decor. Avaliable for indoor and outdoor use.

FLAT THRESHOLDS IN VARYING WIDTHS, A UNIQUE SHOWER THRESHOLD WHICH

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IS AVAILABLE IN TWO HEIGHTS AND A RANGE OF MODULAR RAMPS THAT CAN BE USED IN A VARIETY OF APPLICATIONS. ALL PRODUCTS ARE HELD IN STOCK AND AVAILABLE IMMEDIATELY. PLEASE CALL US FOR FURTHER INFORMATION OR VISIT OUR WEBSITE.

Zero Seal Systems Ltd Units 43 - 45 Ladford Covert, Seighford, Stafford, ST18 9QG, United Kingdom Tel : +44 (0)1785 282910 E-mail : sales@zeroplus.co.uk

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more than just a radio British Wireless for the Blind Fund has been providing free audio equipment to visually impaired people in your community for over 90 years.

Find out more about how we change people’s lives and how we could support you or someone you know by visiting blind.org.uk

blind.org.uk

Registered Charity Number : 1078287 Scottish Charity Number : SC041582

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enable life

Product Roundup Step into spring with our top picks of the latest adaptations and aids on the market STYLE

HEALTH

WHEELCHAIR TROUSERS

CIRCULATION BOOSTER

Able2 Wear, from £43.50 www.able2wear.co.uk, 0141 775 3738

Revitive, £249.96 www.revitive.com, 0800 014 6377

People living with diabetes, arthritis, or other mobility issues can reap the benefits of improved circulation with circulation booster from Revitive.

With 20 to 30 minutes of daily use, your muscles will be stimulated to help reduce swollen feet and ankles, reduce pains and cramp, allowing for increased mobility.

Able2 Wear’s range of specialist wheelchair trousers are designed with comfort and ease of use in mind.

Available in a variety of colours, fabrics and styles including dropfront, elasticated waist and tailored wheelchair trouser options; each boasting a high back, flat seam and shaped seat style for optimum wearer comfort.

STYLE

BLOSSOM LONG LENGTH BIB

Bibble Plus, £13 www.bibbleplus.co.uk, 0115 849 0174

Eat and drink with confidence with the stylish adult bibs available from Bibble Plus. Available in a range of colours, for both male and female users, the bibs are easily adjustable and can be worn on top of or under clothing to ensure food spillages or dribbling don’t damage clothes.

MOTORING

STYLE

SLIDE-AWAY

MULTI-COLOURED WHEELCHAIR WHEELS

Vapor Ricon, POA www.vaporricon.co.uk, 01509 635920

Get greater vehicular access with Vapor Ricon’s new Slide-away, as part of the popular S-series. The lift is designed to fold-away concertina style, making it clear vehicle doorways by sliding up and out of the way; the lift can be stowed behind a seat with the press of a button.

Loopwheels Carbon, £999 loopwheels.com, 01623 860909

HOME

MONITORING AND ALERT SYSTEM

Loopwheels are priding themselves on reinventing the wheel for a smoother ride. The wheelchair wheels – available in a selection of colours – reduce the feel of vibration on the wheel with integral suspension by up to 70 per cent. In turn reducing user pain to allow you to travel further for longer.

TEC-Angel, POA www.tec-angel.co.uk, 01245 860252

TEC-Angel is a standalone, monitoring and alert system enabling vulnerable adults, to live at home keeping their independence, dignity and privacy while giving those who care for them peace of mind. Discrete sensors communicate with the hub, monitoring door and room movements sending an alert text should something unusual occur.

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Enabling vulnerable people to live safely in their own homes

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26/04/2019 12:39

enable life MOBILITY

PANOVA WHEELCHAIR LIFT

Panova Lifts, POA www.panova.biz 01482 480 710

Forward thinking and innovative, the Panova wheelchair lift is the leading choice for improving disabled access at home and in businesses. The lift allows users to safely overcome steps of one metre in height and lies in a discreet pit when not in use. The ideal choice for homeowners, OT’s and architects.

MOBILITY

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MOBILE STANDER BY RIFTON

OPUS

Jiraffe, POA www.jiraffe.org.uk, 0114 285 3376

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Advance standing and social skills with the mobile stander. People with additional needs can engage with peers and form relationships by using the mobile stander to support their body weight whilst standing – even for people with no weight-bearing ability.

There are five sizes available and is designed for children and adolescents.

Introducing Opus, the only DAB+/FM, USB playback and record, portable digital radio of its kind created for people living with sight-loss. Uniquely designed with visually impaired users in mind, the large colour contrast, tactile buttons provide the user with the confidence and independence to stay connected to the outside world.

TRAVEL

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Able Move, £384.99 www.easytravelseat.com, 07770 510766

The award winning easyTravelseat – endorsed by easyJet Founder Sir Stelios Haji-Ioannou – believes ‘the sky’s no limit’, by providing in-situ transfer seats for people requiring transfers from their wheelchair to the aircraft cabin.

Remove the discomfort and time from manual lifting procedures during your air travel with the help of Able Move’s easyTravelseat.

Designed for people living with deteriorating dexterity, the award winning Keywing is an innovative new key turner. It clips onto keys to give extra grip, leverage and control, making holding and turning keys much easier, and the beautiful colours put an end to the confusion of which key is which.

MOBILITY

MOLIFT EVOSLING SHADOW HIGHBACK XL

Molift, £111 inc VAT www.molifthoistsandparts.co.uk, 01772 814 555

Adapting to the contours of the body, the sling allows for easier moving and handling for carers. With split leg support the sling is comfortable as well as secure. Especially suited for transferring to a wheelchair (excluding moulded seats), the six suspension straps, and loops give the sling additional flexibility.

Until 30 June, Enable readers can get 20% off with code Enable20

enablemagazine.co.uk

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enable subscribe

Subscribe to Become a subscriber and get the nation’s favourite disability lifestyle title delivered direct to your door every other month

N

ever miss the latest disability news, interviews and more with a subscription to the UK’s leading disability and lifestyle title: Enable Magazine.

From discussing benefits with politicians in the know, hitting the track with Jonnie Peacock, or travelling to Berlin to discover the best accessible holiday destinations – you name it, we’ve written about it.

By becoming an Enable subscriber, you’ll get every issue of the magazine delivered direct to your door every other month – that means no queuing up at your local distribution point, and never miss out on any of the action from Enable!

WHAT DOES IT COST? You can subscribe for either one or two years at a time.

• One year (six issues) - £15 • Two years (12 issues) - £25

HOW DO I GET INVOLVED?

There are three ways to subscribe now, making it more accessible than ever.

1

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To speak with a person, call us in the office on 0844 249 9007, and a member of the team will take your payment details over the phone.

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Expires:

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26/04/2019 11:11

The Thistle Assistance Card is available in a variety of formats and languages. For more information and to have a physical card sent to you please visit or call your region:

www.sestran.gov.uk 0131 524 5150

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www.hitrans.org.uk 01463 719002

Start using TODAY - Search for Thistle Assistance Card and download now!

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25/04/2019 16:22

Juvo Powered Wheelchair

Enhance Life. Demand Quality.

With front-wheel, mid-wheel and rear-wheel drive, the Juvo range provides the option to choose between specific driving characteristics and motor powers of three drive types in two frame widths.

A high degree of flexibility is assured by the new VAS (variably adjustable seat) frame solution with Ergo-Joint back support angle adjustment as well as innovative special and environmental controls, among other features. #DemandQuality

Visit www.ottobock.co.uk or call 01784 744900 to find out more.

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01/04/2019 09:19

26/04/2019 14:31

enable sport

Calling all superheroes S

Summer is just around the corner and that means it’s almost time for the Superhero Series’ annual Para Triathlon. We caught up with celebrity team captains Joy Haizelden and Anne Dickens ahead of the fun-filled sporting event

uperhero Series is the UK’s one and only inclusive sporting event suitable for any disability with no restrictions on equipment. Every summer the Superhero Series Triathlon takes place giving people of all abilities the chance to swim, cycle, run or walk around Dorney Lake in Windsor.

The series celebrates everyday superheroes and allows you to bring helpful sidekicks along to assist you around the course. Every year celebrity team captains from sport and screen get ready to take part alongside everyday superheroes, just like you.

This year’s team captains include Paralympian’s Joy Haizelden and Anne Usher (nee Dickins).

Anne has taken part in Superhero Series since the very first event. “It sounded like a fabulous concept right from the very beginning and I didn’t

take much convincing,” remembers For Anne, the event is a platform Anne. to promote accessible sport, Joy has previously attended a something she is passionate about Superhero Tri but didn’t take part, being as a Paralympian. “There are so few a team captain will be her first time pastimes or events out there that cater participating. “In 2017 we had a British for absolutely everyone,” worries Anne.

Wheelchair Basketball ‘have a go event’ “The Superhero Series doesn’t at the Superhero Tri and I was one segregate age, gender or ability so of the junior ambassadors everyone participates together,” there,” explains Joy. “The she continues. “This means atmosphere and the a whole family or a diverse This year’s passion of the people team can come together Superhero Series made me want to get and take part as one unit.”

Para Triathlon will involved, it was awesome take place on to see.”

BARRIERS Disabled people are twice 17 August as likely to be physically INCLUSIVE inactive than non-disabled At every Superhero Series people. The success of inclusive event there are no age limits, sporting events like this one is equipment restrictions or time cutparamount. offs, and only one hard rule – you have “Sport should be available to to have fun. Each Superhero Tri can be everyone and this event offers a described with one word: inclusivity.

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ATMOSPHERE

The inclusive nature of the event means that no one is left out or made to feel like they can’t take part, creating an incredible atmosphere. “My absolute favourite bit is seeing people’s chosen superhero costumes and a field full of smiles,” exclaims Anne.

Every year there are countless stories of people’s attitudes to sport changing, Anne recalls: “I remember hearing a boy say to his family that for the first time ever he feels normal, because here he is in the same group of people rather than the only one who needs special assistance and the odd one out.”

“I can’t wait to be amongst the positivity and joy,” adds Anne.

This life-changing positivity is what

“The Superhero Series

doesn’t segregate age, gender or ability so everyone participates together

“

massive opportunity in sport while actively addressing and removing barriers – it’s so important,” stresses Joy. “Sport can have a huge impact on someone’s life.”

The event works to challenge barriers to inclusive sport and create opportunity, Anne says: “Having a disability shouldn’t be a barrier to being able to access the benefits of sport – you actually need them more.

“The Superhero Series showcases brilliantly how, if barriers are removed, sport is not only possible for everyone to join in with, it’s also a huge amount of fun.”

attracted Joy to the event initially and has her excited to be a celebrity team captain for the first time. “I think just seeing the different kinds of people who will be there and involved and also raising awareness of all different types of sport will be amazing,” Joy explains.

TEAM WORK

Everyday superheroes can take part solo, with a sidekick or as a team.

There’s even a chance to make your way around Dorney Lake with a celebrity

team captain.

“I’m really excited to meet my new team mates and I’m thinking about what costumes we could wear,” exclaims Anne. “This is the most amount of fun you will ever have at a triathlon.”

Trying something new can be nerveracking, regardless if you have never taken part in a sporting event before or sport is one of your main hobbies, this event is for you.

Even the celebrities get nervous, Joy says: “I was excited and honoured to be asked to be a team captain but I am also nervous because I’m facing similar challenges to my team mates that I’ve never pushed at before.

“It just makes it more special doing it alongside other people as well.”

Being part of a team can help tackle your nerves and you might even make some new friends along the way.

The only thing left to decide is whether you want to enter solo or join in with friends and family, and what superhero outfit you will wear!

CELEBRITY COMPETITION Win a chance to take part in this year’s Superhero Tri alongside a celebrity team captain like Joy or Anne. Each team is looking for two teammates to join them at the triathlon and

complete a stage of the relay.

To enter visit www.superheroseries. co.uk to share your story and what your own unique superpower is before 20 June.

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5

atch y Desp

Da

*

atch y desp ing da s. *5 work stocked item on all

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26/04/2019 15:11

enable

spotlight

The perfect match Every year, around 30,000 children are placed into care, waiting to be matched with the perfect family. Fostering a disabled child is a hugely rewarding experience for the foster child and foster carer. Saskia Harper spoke to one foster carer about their experience

F

oster carers provide children and young people with safe and stable homes, when they cannot stay with their parents or legal guardians.

Placements can last for any amount of time from days, all the way up to years. Foster carers have to be caring, enthusiastic, and supportive, and this is amplified if you’re looking to foster a disabled child.

While it can be daunting to think about the commitment involved in fostering a disabled child, the reward is well worth it. You will be given ample training, to ensure you’re well-equipped and ready to embark on this exciting journey.

ADVENTURE

Catherine Brewer is a foster carer with TACT Fostering and Adoption,

and began to look into fostering after was a match for us, regardless of what working extensively with disabled their needs were.” children.

While the application process can “[My partner and I] spoke about it be long, it has the best interest of for a long time before we made the the foster child and the carer at its leap into doing it,” explains Catherine. core. The only prerequisite for being “We felt we had some experience and a successful foster carer is having an thought we’d be able to make a open mind, and caring personality. difference to help children and “We believe the most their families.” important criteria for Catherine’s family becoming a foster carer Foster Care embarked on their is an ability to listen Fortnight takes fostering journey, and and to empathise, to be place from after a six month process there for the child and to they were matched speak up for the children 13 – 26 May with two siblings who you care for,” explains were both on the autistic Andy Elvin, CEO of TACT. spectrum. The family now “We passionately believe in fosters a young boy with an supporting our foster carers with attachment disorder. ongoing training and support that “When we started fostering, we said enables them to provide the best care we’d foster any child,” says Catherine. possible to the children and young “We wanted to foster any child that people.”

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NEEDS

When it comes to fostering a disabled child, there are many different options that will best suit yourself and the child in your care, depending on everyone’s needs.

Long-term fostering options are ideal if you want to welcome a child into the family home for an extensive period of time, and have the resources, skills and compassion to encourage them to grow and thrive. Catherine’s current foster child has been with the family for five years.

Fostering agencies around the country also look for respite foster carers: who provide short-term care for a night, a weekend or a holiday, to give families and carers of disabled children a break. This enables children to meet different people, form new relationships and build confidence. Short break fostering takes a more flexible approach and is dependent on your availability.

“You’ve got to adapt,” advises Catherine. “It’s like anything: you have to learn your own way. Everybody makes mistakes, you try things and do your best and learn. We’ve had lots of training. I think we’ve learned a lot from other foster carers and there’s a lot of support out there if you’re struggling.”

FAMILY

For some prospective foster carers, it can be daunting to think about how the decision will affect your family, but for Catherine, and many others, fostering has had an overwhelmingly positive effect on their families.

“Our children are at university now, and have grown up while we were fostering,” says Catherine. “I think they’ve benefitted from it so much, because they’ve now got a better understanding that there’s such a diverse culture and some people do need support and help at times. So, it’s had a positive impact and has given them a greater outlook on life.”

The benefits of fostering are clear: not just for the foster child, but the whole family.

STABLE

“We’ve been able to provide our foster children with a stable, nurturing environment and knowing they can reach their full potential,” enthuses

Catherine and partner Kenny

Catherine. “It’s been hard at times, but he’s doing so well, and we’ve seen the changes in him over the years. He’s growing into an independent young man and he’s thriving and that’s the main thing.”

“When children find a loving and caring home, they begin to thrive,” Andy agrees. “They start to believe in themselves, achieve their goals and ultimately build a better secure life.

Seeing their children blossom makes a foster parent feel proud – as any parent would.”

Not only does finding the perfect match through foster care provide children with a loving home, it creates new families with different dynamics, perspectives, experiences and feelings, making for a melting pot of compassion and support.

“Our foster children have enriched our lives,” Catherine concludes.

“They’ve had a massive impact on us.

Whatever we’ve put into it, we’ve got so much more back – it’s so rewarding.

We’ve had the opportunity to care for wonderful children and support them and their families. It’s only positive, the impact it’s had on us all.”

Whatever we’ve put into it, we’ve got so much more back – it’s so rewarding

FOR MORE INFORMATION

Get expert advice on fostering with TACT Fostering and Adoption, visit www.tactcare.org.uk

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Specialist Res Could you support a child with disabilities when their family needs a helping hand?

Mainly at weekends, could you provide occasional, yet regular commitment to support a child with disabilities?

Care and support at home - a few hours to a weekend Overnight care at home or in the carer’s home Being involved with a child’s life activities and play schemes If you have personal or professional experience of working with children with a disability we would like to hear from you. /hampshirechildren

@hantschildren

Visit hants.gov.uk/specialistrespitecare or call 0300 555 1384

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26/04/2019 16:55

enable employment

“

“

new career

RIDING THE RAILS TO YOUR

It’s helped my confidence and I’ve got to learn about different cultures

Every day, companies are driving disabled employees to reach their full potential in the workplace. Transport for London (TfL) has been committed to supporting their disabled staff for years, and want to continue to develop opportunities

L

aunched in 2009, TfL’s Steps into Work scheme is a work experience programme for adults with learning disabilities and individuals on the autistic spectrum.

Since the launch over 10 years ago, the programme has hosted more than 280 placements, and over the last two years, 83 per cent of participants have found paid employment within 12 months of completing the scheme.

Steps into Work is run in partnership with Remploy, and Barnet and Southgate College. It hopes to equip candidates with transferable skills, and bridge the disability employment gap.

EXPERIENCE

David Yeboah, took part in the programme in 2015, and has since found employment with TfL as a customer service assistant, thanks to the experience he gained through Steps into Work.

“It seemed like a good experience because you got to go into different parts of TfL and learn what happens behind the scenes,” explains David. “I went to

an assessment day, did two roleplays and an English and maths test for the application.”

During the scheme, participants complete three different placements across a variety of mainly office-based sectors.

PLACEMENT

“I was really happy when I found out I’d been successful,” remembers David.

“My first two placements were mostly administration-based, booking meetings and filing different things. My last placement was as a customer service assistant at Kings Cross Station, which was more people-based.”

Throughout the placement, Remploy matches candidates with a job coach, to provide support, help with the transitions between placements and assist with finding employment upon completion.

“The biggest challenge is the language barrier,” David says. “In a tourist station, you meet a lot of customers where English isn’t their first language and we have to slow things down so they can understand where they need to go and if they need to change stations.”

FUTURE

Upon completing the programme, David applied for a position as a lost property assistant with TfL, and was successful.

He has also worked for London Underground and is now a customer service assistant, doing what he does best: helping passengers to safely get to their destinations and delivering the best service to travellers.

“It’s helped my confidence and I’ve got to learn about different cultures,” enthuses David. “If I wasn’t doing the job that I’m doing now, I don’t think I’d have learned as much as I have. It’s helped me with interviews too, because I have to talk to people and I feel much more confident talking to large groups of people.”

So, if you’re looking for an opportunity that could kickstart an exciting, dynamic career, why not apply to Steps into Work?

You never know where it may lead you.

FOR MORE INFORMATION

Discover Steps into Work by visiting: tfl.gov.uk/corporate/careers/steps-into-work Applications for this year close on 7 June 2019.

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Find your perfect place.

As a leading recruitment outsourcing provider, Guidant Global can offer you direct and exclusive access to great jobs with some of the UK’s top employers.

We’re also a Disability Confident Leader, and our award-winning approach to disability inclusion is building careers and changing lives.

criteria required for the job) and please don’t forget to tell us about any adjustments you might need during the recruitment process.

It goes without saying, we welcome applications from people with disabilities! In fact, if you have a disability, we’ll guarantee you an interview for any internal role (assuming you meet the minimum

If you would like to find out more about inclusive careers at Guidant Global, or search for roles with our amazing clients, please visit our website. jobs.guidantgroup.com

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17/12/2018 16:57 10:57 26/04/2019

The

Line

of

Duty

Under the blue lights of emergency care the adrenaline and fastpaced life is what attracts many. The opportunity to care for the community is another driving factor. For disabled people looking to get into the police force, what support is available?

T

he process to become an officer is long, gruelling, and tests you every step of the way. It is character building with many police officers taking on a mentally demanding job, as well as physical at times, not to mention the compassion to help the wider community.

Each police officer, detective to inspector brings something different to the role.

And Ollie Rees is no different.

HURDLES

Ollie knew he wanted to work with the police since he was a young boy.

Inspired to join the force after watching family members in their roles with the police – not to mention a penchant for police programmes; as Ollie went through his training, his disability heavily impacted his journey almost every step of the way.

“Due to the nature of my disability I simply wasn’t sure if I’d be let into the police if successful and there seemed like there was absolutely no one I could talk to about any queries or worries, and this made me feel more worried and alone,” remembers Ollie on his path to becoming a police officer.

Living with muscular diplegia, a form of cerebral palsy, Ollie has to use twice as much muscle power to complete even the simplest of tasks. Due to his disability, Ollie was continually told he would never clock into his dream profession. Even during the application

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process, it seemed as if there were obstacles in the way.

Ollie continues: “For example, on the application form it asks you to declare your disability and write a bit about how it affects you. I remember feeling almost physically sick when trying to answer the questions worried about what I could write in the little box and whether this would have an impact on my chances on being successful.

“I also recall the medical procedure, feeling like a zoo animal being prodded and poked and quizzed about my condition. I’m sure this would be standard procedure, but looking back on it now I feel like it came across as rather insensitive to someone who has got a disability.”

Despite the challenges, Ollie was determined not to let his disability hold him back.

AMBITION

Ollie enthuses: “I am a confident individual and have always had faith in myself, so if I’m honest: every time I got told that I wouldn’t be able to join, it spurred me on even further – to show everyone that I could and would join. It made me more determined.”

His dedication and drive eventually paid off, as, in 2017, Ollie joined Hertfordshire Constabulary as a police constable. During his time working to get into the police force, Ollie got assistance and guidance from one of the many organisations working to encourage diversity in policing.

Ollie Rees

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enable employment

Working with a disability teaches you adversity and makes you stronger

Police Now is just one organisation pioneering in encouraging equality in the police force, provide apprenticeship schemes for people across the UK, and enable officers to give the best service possible for the general public. Ollie reaped the benefits of getting assistance from Police Now. “They have always encouraged me to be the best officer I can be and through my assigned development officer have installed a support network away from the police and my family that I can turn to, if needed,” explains Ollie about the support he received.

“My disability doesn’t affect my way of policing,” he continues. “I police like every other officer. Obviously, I have my own approaches on certain things, but this is just due to my character and not my disability.”

Ollie emphasises: “That’s actually the main message here: officers like myself who have disabilities are just like every other officer. We are no better or no worse we have just had a harder journey that’s all.”

DISCLOSURE

Policing with a disability, or going into any other role, there will come a time to disclose your disability. This can be incredibly personal as you may not want your peers to know – especially if you have a hidden disability.

“For some reason it was extremely nerve racking and uncomfortable,” says Ollie of his experience disclosing his disability. “I think feeling this way just proves that policing is not quite where it should be yet in terms of inclusion.

“Yes, it has all the policies in place which is great, but it’s still not easy to talk about having a disability. Having said this though once you pluck up the courage and are open about a disability, the silly comments never last long.”

Once you disclose a disability, there is more scope to get reasonable adjustments in the workplace. Under the Equalities Act 2010 a job seeker should not be discriminated against due to their disability. In the workplace, reasonable adjustments should be made

to ensure all employees can do their job to the best of their ability.

For Ollie, he is allowed 25 per cent extra time in exams and has a work provided laptop for any paperwork. Two small adjustments that allow Ollie to excel in his dream career. With support from organisations like Police Now or reasonable adjustments, you could be on the line of duty before long.

“It is possible,” Ollie encourages. “A disability is just a label; in no way does it define who you are. Working with a disability teaches you adversity and makes you stronger. I would say, feel empowered by your disability, don’t hide behind it and know that you are capable of doing anything you put your mind to.”

FOR MORE INFORMATION

Police Now www.policenow.org.uk Disabled Police Association www.disabledpolice.info College of Policing recruit.college.police.uk

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We believe organisations with both diverse workforces and inclusive cultures serve their people and society better.

As a government department, we’re responsible for delivering areas that are fundamental to the economic success of the UK. We’re committed to making our workplaces accessible.

Everything from modifying or providing the right equipment to home working and tailored training.

Our Capability Action Network (CAN) champions colleagues with disabilities and long term health conditions and provides confidential advice to join up departmental support and specialist groups.

Find out more about opportunities at BEIS.

Visit: www.vercida.com/uk/employers/departmentfor-business-energy-industrial-strategy

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26/04/2019 17:21

enable education

An inclusive future at work From 13–19 May, Learning at Work Week will highlight the importance and benefits of learning and development in the workplace. The week is even more relevant for workers with a disability

D

aspirations. isabled people are more LWW is for everyone regardless of than twice as likely to be ability, but the campaign is particularly unemployed as nonimportant for disabled people. This disabled people, with the year’s theme is shaping the future. disability pay gap at 13.2 per cent for The theme promotes inclusion, those who are in employment. advancements and long-term A lack of development and impact through three main understanding inside office categories: Future open; walls often contributes to Learning at Work Future ready; Future barriers in the workplace Week takes place active. for disabled people. from 13 – 19 May In the last two years, 2019 the government has SHAPING THE announced plans to reduce FUTURE the disability employment gap All people should be given and get more disabled people the opportunity to learn and in to work in England, Wales and advance in their career. Learning Scotland. at Work Week (LWW) helps to Initiatives like the Disability support business and puts a spotlight Confident Scheme are pushing on employees’ goals, needs and

businesses to become more inclusive as a whole, but more needs to happen at ground zero with individual employees.

LWW provides the opportunity and motivation to create positive change.

FUTURE OPEN

In the continually advancing digital age, stimulating curiosity and discovering new ways to learn is easier and more exciting than ever.

As time goes on, assistive and adaptive technology leave employees open to future learning. Continued professional development (CPD), distance learning and webinars provide opportunities to advance in your career.

Your right to reasonable adjustments in the workplace encompasses certain assistive technology. Colleagues might

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be curious about how adaptations help you work on similar projects to them.

During LWW taking time to discuss the types of adaptive technology that help you, and how, can make your colleagues feel included in the process and in turn, normalise assistive features in the workplace.

Training your colleagues on how to use adaptive technology can encourage debate and show them new ways to learn. This can also work with your favourite accessible apps or learning sites.

If your workplace has the facilities available, teaching colleagues using virtual reality or other interactive technology can make the experience more impactful and memorable.

FUTURE READY

Better disability education in the workplace is the fastest way to improve inclusion and create a long-lasting effect, both in and outside of the office walls. Bringing a group of employees together during LWW can help build and enhance learning cultures to shape, adapt and become more resilient to

“Learning at Work

Week provides the opportunity and motivation to create positive change

change.

An open discussion shows your peers in the workplace that it is a safe space to ask questions they have about disability, learn how they can assist you at work and how to better treat disabled people both in and outside of work.

Bringing together a group with common interests of both disabled and non-disabled employees allows you to learn from each other about how to complete tasks using different methods.

Take the chance to celebrate different types of learning with bite-size sessions, teaching colleagues face to face. Using technology to promote your colleagues’ disability education online and via social media can also create long-lasting lessons that they can pass on to peers.

FUTURE ACTIVE

Every year, LWW is a call to action for employers and businesses big or small to create positive change in the workplace so everyone feels able to learn and develop in their career.

Taking things back to basics can refresh employees on the essentials necessary to do their job. Refresher sessions can also be used to identify barriers and problems in the workplace.

This process helps to generate new ideas while actively shaping companies and individuals. Workshops with team leaders and colleagues can bring inspiration for new services and development at work.

Discussing previous barriers in the workplace and how they overcame them with senior managers works to promote continual and innovative

learning.

LWW provides the opportunity to reflect on your career achievements, set goals of what you would like to achieve and draw inspiration from others.

Speaking to colleagues about their learning journey, how they work and what they want to achieve can create an open, collaborative culture at work.

Open relationships between disabled and non-disabled employees allows for equal opportunities for internal promotion, shared perspectives and inclusion in the workplace.

Employer opportunities Learning at Work Week is the perfect opportunity for employers to inspire their employees and peers.

Recognising employees’ achievements through team rewards, appraisals and award ceremonies can raise morale and motivation in the workplace.

This is also a great time to launch new workplace initiatives to improve inclusion and disability education at work.

Posters, workshops, seminars and more can be used to bring employees together and boost confidence.

For more information and ideas visit www.campaign-for-learning.org.uk

“

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Committed to equal opportunity We’re Scotland’s public-sector auditor, responsible for ensuring that the Scottish Government and public-sector bodies are held to account for the proper, efficient and effective use of public money.

We are committed to equal opportunity and to a culture that respects difference and we welcome applications from all sectors of the community.

We offer an interview to all disabled candidates who meet the essential criteria. As an employer, and in our audit role, we play a leading part in the promotion and application of diversity and equality.

The IPO is an inclusive employer. We are building a great place to work where everyone is confident being themselves.

Visit Civil Service Jobs and search for the Intellectual Property Office.

2018

www.audit-scotland.gov.uk/careers Intellectual Property Office is an operating name of the Patent Office

At Registers of Scotland, we strive to ensure that all our colleagues work in an inclusive environment which bring their different knowledge, experiences and perspectives together to ensure we are at our creative best to serve the people of Scotland.

For info on our equality, diversity and wellbeing activities for 2019 visit www.ros.gov.uk

Place your creative SEND students with us • We work with many local authorities to provide creative SEND students with the vocational qualifications they need to progress on to University and creative careers.

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enable voices

RIDING WITHOUT

LIMITS Josh Patterson has been in the limelight since his time on hit show Made in Chelsea. But now, Josh is making headlines for different reasons. He spoke to Saskia Harper about his journey from John O’Groats to Land’s End in a wheelchair

I

n 2017, Josh Patterson found out that his best friend, Ben Tansley – who had just met his new-born daughter that afternoon – had been involved in a motorbike accident, which left him paralysed from the waist down.

Instead of letting the experience defeat him, Ben asked Josh to complete the Berlin Marathon with him, which they did, almost exactly a year after the accident.

And they did it in wheelchairs.

Now, Josh is trying to set a new world record for the fastest ever time from John O’Groats to Land’s End in a wheelchair.

MENTAL HEALTH

Josh and Ben during the Berlin Marathon

JOURNEY

“Off the back of my own troubles with mental illness, I want to make sure others can understand the possibilities of the bright future they can have,” Josh enthuses. “I want to showcase what we’re capable of doing mentally and physically, even when you’re at your lowest.”

Josh’s drive to undertake even the most seemingly impossible challenges show he’s much more than the stereotypical reality TV personality – he is working to encourage greater understanding of life with a disability.

“I used to commute to work in my wheelchair and I really did it because I wanted to get a sense of what it was like for Ben, and other wheelchair users,” explains Josh. “You get such an understanding of how difficult it is to get into stations; or zebra crossings where cars don’t stop for you, and little things like kerbs and pathways aren’t sufficient enough.”

Having been open about his own struggles with mental health, Josh explains it is one of his biggest motivations throughout challenges he’s undertaken.

“I probably don’t really look like someone who would be affected by mental illness and that’s even more reason to be vocal,” says Josh. “I’m turning 30 this year, I’m a father, I know who I am and I think by showing that vulnerability, I see strength in it.

“The only way we can kill the stigma and enable people to have better lives is to start talking about mental health and not making it just a campaign, but talking about it frequently, so that it does become part of our reality.”

POSITIVITY

Don’t just look at the story and be inspired. Be inspired to start your own story

Josh believes as more people in the public eye speak out about their own mental health, the more people will be able to resonate with them.

By using his platform to spread positivity, he’s also challenging public perceptions of disability and mental health problems.

“Don’t just look at the story and be inspired,” he urges. “Be inspired to start your own story. Don’t ever listen to statistics, because in doing that, you’re comparing yourself to somebody else and what you need to do is creating your very own statistic.”

FOR MORE INFORMATION

Keep up to date with Josh’s journey on Instagram @joshuapatterson_jp

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26/04/2019 17:32

enable voices

My

Autistic big brother and me

A

fter a successful career in the Royal Air Force, Mikey Kay made the leap into broadcast journalism. It was through this he turned his hand to filmmaking, which led to the creation of his hit BBC documentary: My Autistic Big Brother and Me. The film focuses on the lives of his brother, Spencer, and their mother, Nicola, who spent her life caring for him.

BEGINNINGS

“I started filming Spencer when we were up the mountains because his reactions were so wonderful,” remembers Mikey.

“It got some amazing responses online and that led me to make a teaser. People started asking me when the main film was coming out. I hadn’t thought about that, but that led me to think about doing a bigger documentary.”

Spencer is autistic and, as the documentary showcases, thrives in the outdoors, scaling mountains like it’s second-nature.

“He has an innate abundance of energy inside him,” Mikey says. “He’s got thighs like a Tour de France cyclist.

In the mountains, he can be by himself and purge his energy, but also download everything that’s in his mind. When you’re in the car after and he’s quiet, he’s in his happy place. What he gets from the mountains, and what I get from seeing him in the mountains is something really special.”

What he gets from the mountains, and what I get from seeing him in the mountains is something really special

Following the fight of one family to access support for their brother and son, My Autistic Big Brother and Me has struck a chord with viewers around the country, showcasing the profound effect the outdoors can have for people on the autistic spectrum SECOND

The film is dedicated to Mikey and Spencer’s mother, Nicola, who died of cervical cancer in 2009. It highlights the struggle that many parents of autistic children face when trying to access support.

“Mum ignored herself, really,” explains Mikey. “She didn’t go for a smear test for 23 years and then I came back from a tour of duty in Iraq and found out she had a stage three tumour on her cervix.”

Demonstrating the realities for many carers, who often put themselves second, the film also pushes for change, to provide ample support to people on the autistic spectrum, their carers and their families.

FAMILY

“I’m hearing stories that are mirror images of what mum and Spencer went through,” Mikey continues. “Some mums are saying that the film was the ticket they needed to go to the doctor, book in for a cervical screening and look after themselves.”

Receiving a hugely positive reception online, the documentary breaks down barriers and showcases the incredibly close bond between Spencer and his siblings.

“Try and look at people like Spencer through a non-judgemental lens,” urges Mikey. “Society has made us conform to a certain optic of what someone should be, and not everyone is like that.

But, that doesn’t mean they should be treated any differently to anyone else.”

FOR MORE INFORMATION

You can watch My Autistic Big Brother and Me on iPlayer now, and keep up to date on Mikey’s upcoming documentaries at www.mikeykay.com

Read our full interview with Mikey online at www.enablemagazine.co.uk

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Training May

June

Introduction to working with individuals on the autism spectrum - 7 May, Lancaster

Understanding stress and anxiety - 11 June, Edinburgh

Autism and Eating Challenges - 15 May, London Esse Essential Autism Licensed User Training - 15 and 16 May, Barnsley

Teen Life Licensed Training - 19 and 20 June, Nottingham Social Stories - 21 June, London Understanding stress and anxiety - 25 June, London

EarlyBird Licensed User Training - 21-23 May, Barnsley

EarlyBird Plus Licensed User Training - 25-27 June, Sheffield

Unde Understanding the workplace for autistic employees - 28 and 30 May, London

Understanding autism for managers - 26 June, London

Conferences Autism, Gender and Sexuality 17 May, Leeds

Autism and Adulthood 26 June, London

Keynote by Wenn Lawson (Autism Consultant, Lecturer and Author) exploring ‘Autism and Gender Identity’

Exploring employment, health and wellbeing, relationships, ageing, and more, through personal insight and best practice.

www.autism.org.uk/events

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