Nova 2018 by DC Publishing

ISSUE 3 2018 â&#x20AC;¢ www.novadisability.co.uk

D I S A B I L I T Y

SOMEONE IS LISTENING

Life after acqu iring a disabil ity can be challenging. F ind out what support and guidance is out there.

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WELCOME

Hello, and welcome to the third issue of NOVA Disability! NOVA is a magazine specifically for people who are new to disability. That could mean that you have acquired a disability, someone close to you is newly disabled, that you are new to working in the area – or you simply want to become better informed.

PUBLISHER

Denise Connelly denise@dcpublishing.co.uk

EDITOR

Laura Hamilton laura.hamilton@dcpublishing.co.uk

FEATURES WRITER Lorne Gillies

lorne.gillies@dcpublishing.co.uk

CONTRIBUTOR Katie Goh

DESIGN AND PRODUCTION Lucy Baillie

lucy.baillie@dcpublishing.co.uk

PRODUCTION ASSISTANT Lisa McCabe

lisa.mccabe@dcpublishing.co.uk

SALES

Carl Farnworth

There’s a lot to take in, so we’ve broken it down into helpful, bite-size chunks, and even an A-Z of disability. There are plenty of different therapy and counselling options out there if you want the extra support – for you and your family. We also look at depression and how to spot the signs and get help. The most important thing to realise is that you’re not alone: there are always people and organisations who you can turn to. We talk to former England rugby back-row Ed Jackson, a recovering quadriplegic, about his journey and how he has created a community on social media. Ed has been documenting everything on social media in a straightforward but hilarious way so follow his journey on Instagram @edjackson8. Summer is fast approaching and you may be thinking about your holiday plans. Travelling with a disability can present new challenges, but as we discover, it’s no barrier to getting some sun. We get some top tips from disability travel bloggers about how to be prepared and make the most out of your holiday. Sport and exercise is becoming more accessible than ever: from football to pole dancing, there really is something for everyone to enjoy. We take a look at what you can do to keep fit, as it benefits your mental health as well. We hope you enjoy the issue!

carl.farnworth@dcpublishing.co.uk

WORK

Danny McGonigle danny.mcgonigle@dcpublishing.co.uk

WORK

INTERVIEW STAGE

Laura Hamilton, Editor

DISABILITY IN THE RECRUITMENT PROCESS

You’ve got the job!

NOVA DISABILITY

www.novadisability.co.uk

Job interviews make everyone nervous. If you’re being interviewed for the first time since acquiring a disability, then you have more things to think about and the process can feel strange and new

“

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16 THE RISE OF CROWDFUNDING

The NHS only provides the most basic of wheelchairs, so if you need a powerchair and its outwith your budget, who do you turn to? The internet community may be able to help.

23 PROFILE: AIRBNB

Airbnb has made 21 new accessibility features on the website to help

had a couple of congenital conditions – hip dysplasia and joint hypermobilitiy – that became very problematic when I was 22,” says Kamilah Hale. “I’d been in my first graduate job for about six months, so it was terrible timing. My employer at the time made it very difficult for me to work parttime so I began to look for opportunities with companies that allowed flexible working or a chance to work at home.” It’s said that people change careers five times in their work lives – but when it’s not your choice it can be problematic. Unsurprisingly, after Kamilah’s conditions worsened, her confidence suffered. “I went on interviews using a zimmerframe for some and in a wheelchair for others,” she recalls. “I generally tried to hide my wheelchair in the interview as I felt I was treated differently when in it.”

APPLICATION

When faced with an application form, it can be difficult to know what to write and how to disclose your disability. “Be honest and realistic, but if unsure, get guidance on how to word your applications or support during

the communication process with employers. While it’s always good to be honest and ethical, you don’t need to give them your life story,” says Amy Nuttal, program manager at Brighter Futures - Employability Derbyshire (www.brighteryoungfuture.co.uk). Explain your disability as a factual statement, include how it would (if indeed it would) affect you in your role and what support you require, but also use it as a selling point – look at what you have achieved and overcome during your situation and sell it. “You are resilient, passionate, strong and dedicated to overcoming problems,” says Amy. “These are huge strengths and skills that you have likely developed while living your life.” Amy advocates that people disclose their disability in simple, practical terms to future employers, with an emphasis on their ability, transferrable and soft skills. “We firmly believe from our experience working with employers for the last ten years that honesty helps manage expectations, and helps the employer to provide a better duty of care to you when you are in work,” she says. 35 NOVA ISSUE 3

While Kamilah had many positive experiences in the interview process, all it takes is one negative knock your confidence. experience to of an interview went “The skills part very told I answered everythingwell and I was correctly,” she recounts. “In the second stared at my wheelchair part, a manager immediately. I wasn’t allowed to finish a single answer as he kept cutting me off to ask the next question. He didn’t make any notes either. Unsurprisingly, I didn’t get the job. ” Kamilah eventually got up, which are celebrated a job in a startfor their flexible attitude towards remote working. But she highlights another aspect of recruitment that disabled people face: talented people with disabilities are being underpaid. “I was routinely applying for jobs that were for less experienced people, and some employers were keen to get me in as it was a good deal for them,” she says. However, there is some good news. Amy says that misconceptio ns in recruitment towards disability are not the norm. “What we do know from dealing with employers that in reality, there is is very little bias when it comes to disability, as long as candidates are totally honest and transparent during the recruitment process,” explains Amy. Kamilah has since taught herself to code and started an online tutoring company, where she hopes to employ disabled people in the future.

RETRAINING

There is plenty of free support out there, including recruitment agencies that can help you retrain and upskill for

free. It may be the case that you want or need to retrain depending on both your needs and requirements. Employability Derbyshire, like many employment agencies, Kamilah Hale is free to use. It offers a combination of training, onsite work placements with suitable local employers a role and sector in which matches their skills, “You are resilient, personal mentoring, training and initiatives, passionate, strong and until they are ready for the next step. The non-profit organisation then dedicated to overcoming works with people from a range of disadvantaged problems. These are backgrounds, including probation programmes domestic abuse and huge strengths and needed, , to obtain the skills and bag the dream job with career skills that you have advice, application and CV support. likely developed while “I am deaf in one ear,” says Amy. “I was offered employment within the company. living your life” I am walking proof that the programme Amy Nuttal works.” The government also provides support – simply contact your local Job Centre for more details about Access to Work and Specialist Employabilit y Support.

STAYING PUT

Not everyone wants to acquiring a disability move after – and some companies are both flexible supportive. Tom Dowling, and Risk Advisor at Allianz (www.allianz. co.uk) was involved in a car accident while on the job in 2011, but with the help of his managers and occupationa l therapists, works three days a week. “I suffered a brain injury, so externally I look fine, but I get mentally fatigued easily,” he explains. “Allianz provided me with lots of support - my manager visited me and I didn’t have to worry financially. I wanted to get back on the road, although Allianz always assured me there were other options.”

For Tom, returning to work was a huge achievement . “My condition will improve over time, but I will never get back to how I was,” he says. Tom’s work still involves driving, although his longest drive has been cut down to an hour. His workload has shifted to working reduced hours and

his targets are adjusted. “My manager still discusses routes to progress my development and I don’t feel that there are any barriers. My colleagues have all been very supportive.” “Don’t be afraid to ask for what you need,” encourages Tom. “Be honest and open in terms of how you are affected and what you can still bring to your job.”

Tom Dowling

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disabled people find a place to stay on holiday that caters for exactly their needs.

35 YOU’VE GOT THE JOB!

Interviews are always daunting, but adding disability into the mix can make it extra challenging. What is the recruitment process like if you have a disability?

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CONTENTS

What’s Inside 40

REAL LIFE

WORK

We chat to the former professional rugby player about how social media has improved his recovery journey and given him a sense of community.

We take a look at what the recruitment process is like for people with disabilities, and how your workplace can adjust to your needs.

SUPPORT

38 GETTING BACK TO WORK

We take you through the A-Z of disability – literally.

8 PROFILE: ED JACKSON

11 TIME TO TALK

Therapy is becoming less and less taboo as people are opening up about their experiences. We look at the different types of therapy and what they all offer.

16 THE RISE OF CROWDFUNDING

As government cuts leave people without the vital equipment they need, many are turning to crowdfunding for specialist wheelchairs.

35 YOU’VE GOT THE JOB!

There’s free support and guidance on how to get back into the workplace. Whether you’d like to upskill or want more confidence, we have it covered.

MOTORING

25 BACK IN THE DRIVER’S SEAT

Itching to get back on the road? There’s a lot of options out there. We take you through what you need to do to make sure that the WAV is right for you.

6 A-Z DISABILITY

14 BENEFITS FROM A HELPING HAND

There’s a lot to take in when it comes to benefits. We look at what support is out there and what you are entitled to.

28 DISCUSSING DEPRESSION

Depression can be a dark subject, but it doesn’t need to be. It’s important to know that support is out there and you are never alone.

HOUSING

31 MAKE YOUR HOUSE A HOME

TRAVEL

43 BRING ME THAT HORIZON

Disability shouldn’t be a barrier to travel. We talk to some intrepid travellers for their top tips on how to make your holiday the best one you’ve ever had.

Adaptations, adjustments or even moving. When your own home is no longer accessible for you, what’s your next move?

SPORT

40 DISABILITY SPORT: GET SET, GO

The world of exercise is wide open – whether you fancy playing footie or prefer something more left field, there’s a sport for everyone. 4 NOVA ISSUE 3

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A Z GUIDE to DIS to

A C

Acquired disability

Only 17% of people are born with a disability according to Papworth Trust. 83% of people acquire a disability through accident, injury or health.

Care

One in ten people is a carer according to the Carers Trust. If you need care, contact your local council who will give you all the information that you need. If you are a carer, find out more information on www.carers.org.

Family and friends

Your own personal support network can be a lifeline – that’s what they’re there for. Open up to your loved ones about what you’re going through and ask them just to listen. Sometimes sharing a problem feels like a weight off your shoulders.

I Internet

The world wide web has certainly changed everything. Not only does it have a wealth of information on it, but it’s also a great way to communicate with people. From social media, online forums, disability bloggers and vloggers, it’s become a lot easier to find your tribe and likeminded people. Top tip: #a11y is a great hashtag to use.

Benefits

The main disability and sickness benefits are Disability Living Allowance (DLA), Attendance Allowance and Employment and Support Allowances (ESA). Depending on your circumstances, you may be exempt from paying VAT and certain taxes, and if you’re a veteran, you may be able to get compensation if you were injured or disabled while serving in the Armed Forces. Consult www.gov.uk for more information.

Depression

A mental illness becomes a disability when it is long-term and affects your day-to-day life. That means, that under the Equality Act 2010, depression can be classed as a disability.

Goals

Stress and frustration can affect us all at some point or other. It’s important to set small, easy goals for yourself, whether you practice mindfulness, prefer to relax over a glass of wine in the evening, or by exercising. If you are struggling, set achievable goals every day, even if it’s just listening to a podcast, phoning a friend or walking to the shops.

Exercise

You don’t have to be a gold medal winning para-athlete to enjoy sport or exercise. There are a lot of different activities out there, from pole dancing to powerchair football, that are accessible and fun. Working out doesn’t have to be a chore, and the effect on your mental health is well worth the effort.

Housing

Whether you need adaptations to your property, or have to look for a new place to stay, it’s important to know your options. If you live in a council property, the council is responsible for adapting it to your needs. If you own your property, consider widening doors, adding stairlifts or handrails.

J K L Joy

Living with a disability doesn’t mean that your life won’t be fun, happy, joyful and contented. If there is something or someone that brings you joy, don’t let go – embrace it. As the late, great Stephen Hawking said, remember to look up at the stars instead of down at your feet.

Keep at it

Without sounding too much like Winston Churchill, never give up. There’s a number of inspiring para-athletes out there who do truly extraordinary things. Conductor James Rose leads an orchestra with a baton held orally. Anything is possible. However, if your goal is simply to have a good day, that’s an admirable aim, too.

Love

Everyone deserves love, but people with disabilities often don’t have the opportunity to talk about their romantic or sexual needs. TV programmes like First Dates have done a lot to raise awareness about this, but more needs to be done to adjust people’s attitudes.

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SUPPORT

ISABILITY M

Negativity

Everyone feels negative and down sometimes. Practice mindfulness – there’s a few free apps to introduce you to meditation and clearing your mind. Self-care will help you feel more positive. It could be something as small as painting your nails or watching your favourite episode of Top Gear.

Questions

When you acquire a disability, people may expect you to be an expert on the subject overnight. It’s ok to ask questions – reach out to charities and medical practitioners whenever you want to know anything.

Therapy

You might be clued up on any physical therapy you may need, but have you thought about therapy for your mind? Talking to a professional who is on-hand to guide you through your emotional well-being, or attending group therapy may be the key to unlocking your potential.

Motability

There’s a whole world out there. Whether you need a powerchair, or a wheelchair accessible vehicle (WAV), there is something out there that will help you get where you need to go. Get in touch with Motability (www.motability.org.uk) a charity specialising in providing cars for people and Scope (www.scope.org.uk) who can provide info about powerchairs and how to get them.

We take you through everything you need to know about disability from A to Z

Work

A lot of people define themselves through their career, and there are some who just want steady employment. You can still get everything you want out of your job; employers are becoming more flexible, and Access to Work is a government initiative that helps get employers sorted for their new employees.

Occupational Therapist

An OT is a medical professional who aims to improve your ability to do activities independently if you are having difficulties. You can get referred to an OT through the NHS or social services – contact your local GP for more information.

Rest

It might seem like you’re overloaded with new information, and have lots of life admin to get through, but it’s imperative you remember to take breaks. Rest is important: pace yourself. Life is not a race.

People with disabilities are twice as likely to be out of employment than people with no disabilities. While you’re out of employment, whether you’re looking for a job, recovering or unable to work, check www.gov.uk for what benefits you are eligible for.

You might feel like you’re in and out of hospital all the time. Lots of tests, doctors peering at your x-rays, and medicine being dolled out - it’s easy to feel like you’ll never get out and go home again. Try to keep your mind active, even if it’s watching trash tv, or reading a magazine.

You can still become a parent if you have disabilities. Being a mum or dad can be the most joyful experience possible, and you don’t have to give that up if you have a disability. There are plenty of parents who have disabilities and enjoy a loving family life.

Support

There’s plenty of support out there for whatever you need. Everybody needs support in some form, whether from friends, or a professional. There are support groups to meet people in similar situations, and specialist organisations which can provide assistance or point you to someone who can.

Unemployment

X-ray

Parenting

Volunteering

If you’re considering going back to work, or simply want to learn new skills, socialise and give back to your community, voluntary work is a great way to ease back into the workplace. There are plenty of charity shops on your local high street that would love to have you in to help, on a flexible schedule that suits you. It’s a great way to meet people and as there’s no pressure, it’s fun, too.

Yourself

It’s important to remember to be yourself and respect your individuality. Having a disability may have affected your sense of identity, but it doesn’t change who you are. That might mean decorating your wheelchair, or wearing bright eyeshadow – you do you!

Zero Tolerance

When it comes to discrimination, there should be zero tolerance. If you are concerned that your rights are being forgotten or ignored, visit www.citizensadvice.org.

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REAL LIFE We talk to the former English professional rugby player Ed Jackson about documenting his recovery journey on social media after a serious injury, and climbing Snowdon

PROFILE:

ED JACKSON COMMUNITY

It started with taking voice notes on his phone in hospital after everyone had gone home. “One of my mates was rooting through my phone, being nosey and found my notes – he suggested making it public so it could help people. I thought it would reach a couple of people but it snowballed,” Ed says. “I went onto social media hoping it would help people, but I’ve got a huge amount out of it. It probably helps me more than it helps others. When I spoke to people in a similar situation, I didn’t feel like I was alone. Although I knew I wasn’t alone, and I wasn’t the only person going through this, I needed to hear I was going to be fine from someone in a similar situation.” For Ed, documenting his journey on social media has been cathartic. “It helps

me process what’s been happening to me, and it also gave me something to do when I was in hospital and needed a distraction,” he explains. And his journey to recovery has been amazing to watch.

I went onto social media hoping it would help people

PIC: ©ED JACKSON

ast year, the former back-row broke his neck diving into a pool and is now a recovering quadriplegic. Ed’s spinal cord injury left him temporarily paralysed from the neck down, and documenting his recovery online made him go viral.

ADVICE

It’s been a year since Ed’s accident and he has two pieces of advice. “Don’t stop moving,” says the former professional rugby player. “Even if you can’t move, keep imagining you’re moving. For four days I didn’t move a muscle, but I was imagining I was.” If you don’t move it, he argues, you lose it. “My other piece of advice is to get your friends and family involved in your physio,” says Ed. “You don’t quite get all the time you need in the hospital, so you need to get everyone involved in your recovery. People feed off your motivation

To keep up with Ed’s progress, follow him on Instagram @edjackson8

and so it’s important to be upbeat.” Another thing that Ed suggests is you take one day at a time. “I sleep a lot sounder if I have a goal or plan for the day, and I complete it,” he says. Ed advocates compartmentalising and concentrating on one small task at a time.

SNOWDON

April last year saw Ed being told by medical professionals that he might never walk again, so naturally he has decided that he will climb one of the highest mountains in the UK. “It’s not medically advisable,” he admits. “The training is going well. I decided to climb Snowdon in November, and it was good to have a goal to aim for in rehab. Once I found out how much support I had, I opened it up and invited other people to join me.” Ed is raising awareness and support for the organisations who have offered him support; Restart Rugby (www. restartrugby.org.uk), which is funding his rehab, The Matt Hampton Foundation, and the third is the Tom Maynard Trust (www.tommaynardtrust.com).

Support Ed’s journey by donating here www.justgiving.com/fundraising/ edjackson8

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REAL LIFE

Time to

Adjusting to life after acquiring a disability can be challenging, especially if you feel like there’s no one you can talk to who understands. We take a look at what therapy options are out there

ecoming disabled is life-changing, not only practically or physically, but also emotionally and mentally. Some people describe coming to terms with an acquired disability as “grieving” as they mourn for the life they once had. If a disability was the result of a traumatic event this can heighten the feeling of loss even more. You may feel like you’re not the same person you once were, or have lost a sense of control or purpose in your life. If these feelings bottle up, they can manifest as serious mental health issues, like depression or anxiety. If you’re feeling unhappy, lonely, withdrawn, or helpless, then talking about your feelings will help you process your emotions. Talking therapies are a way of dealing with your mental health and state of mind. Once a taboo subject, therapy is becoming increasingly popular as society focuses on improving mental health services and awareness. Therapy doesn’t necessarily mean lying on a couch and telling a psychologist your deepest secrets; instead it comes in all shapes and sizes, and can be tailored to fit your needs.

TALKING THERAPY

The best known talking therapy is counselling, when you speak one-onone with an expert about your situation and how you’re feeling. Counselling is recommended for people who need professional help coping with a current crisis, such as anger, bereavement, and the onset of illness. While you and your counsellor might set goals or make an action plan to help you cope, most people say that just the act of talking can improve their mental health. Speaking to a stranger rather than family or friends, means that there’s no baggage attached to the conversation and you can speak openly in complete confidence. Renee Clark, a counsellor based in Glasgow, says that therapy can be hugely beneficial for anyone, but especially for those with newly acquired disabilities. “People’s experiences of friendships and social life can vary after a newly acquired disability,” she says. “Friends could be unsupportive, struggle to understand, disappear or be replaced by new friends.

Shona Cobb

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REAL LIFE

People’s social lives sometimes change as things they used to enjoy doing, like going out socialising, are no longer appealing.” Disability activist Shona Cobb experienced this change. Shona has Marfan Syndrome, a genetic condition which began to affect her when she hit puberty, and as a result, she sought counselling. “I wanted to go to counselling as I’d been struggling with anxiety and depression for a long while,” she says. “I was struggling with chronic pain, feelings of isolation and struggling to move on from previous events in my life.” Shona went to cognitive behavioural therapy (CBT) which works to change negative behavioural patterns. “I finally felt like someone was really listening to me, giving me some of the validation that I needed. It felt like I was talking to a friend most of the time.” CBT is often recommended to people who are dealing with depression, anxiety, post-traumatic stress disorder, or obsessive compulsive disorder, because you and your therapist sets goals to aim towards.

GROUP THERAPY

While it can be productive to chat one-to-one with a medical professional about your situation, it can also be

“I finally felt like someone was really listening to me, giving me some of the validation that I needed” – Shona Cobb helpful to get to get some perspective. Group therapy has the option of being anonymous, and involves a group of people with the same problems or issues meeting with a therapist. Not only can it be helpful to get feedback and support from people in a comparable situation, but it’s also something social and can be a way of meeting other people with acquired disabilities. Realising other people have similar situations, feelings and concerns can vastly improve your mental health. Renee emphasises: “Sharing in a group can be healing and teach you about yourself to propel you forward.” Other types of group therapy can involve people you know. Family therapy can help explore relationships which can change if one family member acquires a disability. It can help people open up in a safe and structured environment as the therapist helps everyone communicates. Your siblings or parents may be coming

to terms with your disability in their own way, and therapy can be a way for the family as a unit to process mental strain.

TACKLING TABOO

More and more people are seeking support, but therapy still remains a taboo subject. Some people think that asking for help can be seen as weak, that something is wrong with them. However, Renee believes the stigma is changing: “People are sharing stories in public, and the aim is to normalise asking for support,” she explains. Renee hopes that with more people speaking openly about their mental health and counselling, the misconceptions about therapy will be eradicated. While therapy might not be for everyone, it can be a tool for opening up about your anxieties and processing your emotions, especially after going through a life-changing event like acquiring a disability. There’s nothing wrong with asking for help and your mental health will thank you for it.

FIND OUT MORE The NHS www.nhs.uk The British Association for Counselling and Psychotherapy www.bacp.co.uk

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REAL LIFE

BENEFITING from a helping hand

You may not realise how much help is out there, but whether it’s tax credits, grants or even concessions, there’s a wide range of disability support tailored for your particular needs. We bring you the need to know in benefit advice PERSONAL INDEPENDENCE PAYMENT (PIP)

www.gov.uk/pip Disability Living Allowance (DLA) is now only eligible for those under the age of 16, and has been replaced by Personal Independence Payment (PIP). PIP is a tax-free benefit that is paid every four weeks – claimants can be both in or out of work to apply. The new benefit has been split into two sections and assessments will determine if you are eligible for one or both sections. To claim PIP, contact the Department for Work and Pensions (DWP), by post or via other accessible routes.

EMPLOYMENT AND SUPPORT ALLOWANCE

still be eligible for ESA depending on various circumstances, including how many hours you work. People aged under-25 will receive £57.90 per week and £73.10 for those aged 25 and over.

WORKING TAX CREDIT

www.gov.uk/working-tax-credit Working Tax Credits are available to people aged over-24 with a qualifying disability. If you continue to stay in work you may be eligible for Working Tax Credits if you work a certain number of hours a week, get paid or expect to get paid for the work, or have an income below a certain level. Depending on circumstances you can receive the basic amount of £1,960 per year. Benefits will be paid into your account every week or every four weeks.

www.gov.uk/employment-supportallowance UNIVERSAL CREDIT Living with a disability can www.gov.uk/universal-credit make it hard to return to TOP TIP People receiving Working work. The Employment and joining a support Tax Credits are not eligible Support Allowance (ESA) group can see offers financial help to people to apply for Universal Credit. the benefits unable to work due to illness However, you may be eligible increase or disability. For those who if you are on a low income, out can return to work, you may of work or live in certain areas.

VAT RELIEF

You may not need to pay VAT if you live with a disability. Certain products may need to be adapted to help you in daily life, and VAT relief will help with the cost. Similarly, VAT will not be charged for repairs or maintenance, spare parts, accessories and any installations or extra work needed. You can receive VAT-free products by confirming in writing that you meet the conditions to any suppliers.

SUPPORT NETWORKS

ENTITLED TO

www.entitledto.co.uk This is the go-to website to discover the benefits that you are eligible for or if you are missing out on any financial support. Entitled To is independent from the government and provides clear and comprehensive information on the benefits available in the UK. Simply pop in your details and Entitled To will do all the legwork – no benefit support will be left unturned.

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Specialists in Spinal Cord Injury Claims We assist people with all levels of spinal cord injury. We help people all over England and Wales wherever they are based. We are a dedicated and specialist team, committed to making the process as straightforward as possible. We are know nationally for our experience and expertise in spinal cord injury claims and for our compassionate professionalism.

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Care & Support Lawyers H E A LT H C A R E • S O C I A L C A R E • C O M M U N I T Y C A R E

Our service is for those facing the complexity of the health and social care system and who are struggling to be heard. Common problems we can help with: – NHS continuing care – appeals – Means testing – including deprivation of assets – Property – adapted housing, equity release, Personal Injury Trust property procedures – Court of Protection – welfare disputes; deputyships; powers of attorney – Employment – understand your rights – Personal Injury Trusts - we are an ongoing Professional Trustee or Deputy for over 600 clients

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23/03/2018 11:04

The rise of

CROWDFUNDING Disability can be expensive, especially when sourcing money for specialist equipment. Self-funding through online sites for electric wheelchairs or other aids has increased significantly in recent years due to cuts in the NHS, but why is it necessary?

he world wide web is a wonderful invention that brings people from every corner of the world together, and is a helping hand for the disabled community. As government cuts affect benefits, the health system, and support for disabled people dwindles, the internet is stepping in. Without a doubt, the rise of crowdfunding has increased tenfold in recent years. Scrolling through sites such as Kickstarter and JustGiving, you see people asking for support to go on holiday or pay for a house deposit. There is also an increase of those in real need asking for help to purchase specialist equipment, such as electric wheelchairs.

requires the use of a wheelchair being restricted to using unsuitable equipment can have detrimental effects. “A wheelchair is the equivalent of a non-disabled person’s legs; it can either hinder or facilitate someone’s life,” adds Lauren, and using the wrong chair can lead to isolation if you are not able to leave the house. Assessments made through the NHS’s Wheelchair Services (www. nhs.uk), although a national scheme, happen on a local level and it all comes down to a postcode lottery. This can be a challenging and difficult time for those in need of a chair that can provide them with a sense of freedom and independence.

RISING COSTS

Many wheelchair users will be provided with a free chair from the NHS, but this is a standard chair that may not be suitable for various conditions or impairments. Lauren West, trailblazers manager at Muscular Dystrophy UK (www. musculardystrophyuk.org) says: “The wrong wheelchair can cause pain, leading to physical deterioration and, sometimes, the inability for the user to leave the house,” continues Lauren. “Wheelchairs are incredibly individualised and there is no one size fits all solution. The correct wheelchair can enable someone to work, socialise, participate in family life and so on. Everyone deserves to have access to the right wheelchair.” The starting price for an electric wheelchair is £1,500 – before adaptations are made to suit individual needs. For someone who

Samantha Renke

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REAL LIFE

HELPING HANDS

Actress and disability activist, Samantha Renke – who has osteogenesis imperfecta (OI), more commonly known as brittle bone condition – recently had to self-fund for an electric wheelchair. It is no secret that London is not the most accessible place in the world and Samantha felt an electric wheelchair would be more beneficial to support her independence when living in the city. After a routine assessment to inquire about getting an electric wheelchair Samantha was refused support. “I was asked if I could still push myself in my manual wheelchair within my flat and I agreed, however I do have brittle bones so if I fracture, then no. Obviously, for them, because I’m not fracturing all the time then I wasn’t eligible. As I suffer from depression and anxiety this was a knock to my confidence,” explains Samantha. Encouraged to start crowdfunding for her new chair by family, Samantha admits: “If it wasn’t for my cousins suggesting self-funding I would never have gone down that road. I would have felt too ashamed and embarrassed to do it myself.” Like Samantha, many disabled people may feel that their essential needs are being overlooked due to a failing system and crowdfunding is the only option. Not only do people have to take the cost of their chair into consideration, adaptations will lead to increased prices and more stress.

“A wheelchair is the equivalent of a nondisabled person’s legs; it can either hinder or facilitate someone’s life” function. Some people with muscular dystrophy will struggle to raise their arms up, so a chair that raises will help them to reach things. Functions like these are often not seen as essential by the NHS.” Additional modifications can result in extra costs for purchasing an electric wheelchair. Samantha has experienced this, too. After requesting an alternate fabric on her chair Samantha was

quoted an additional £200 charge. She explains: “A lot of people need bespoke chairs and I always equate it to having a sports car like a Lamborghini, because it is so sought-after. Companies can just decide how much to charge. That needs to be looked at. I’m not an engineer and I don’t know production costs but for example, I wanted a different fabric on my chair and it would have been £200 for the leather. I went to the market and got some leather for £4 and my friend sewed it on.” On paper, crowdfunding might seem like a quick fix, but it is not a definitive answer to the demand for specialised equipment as more people begin to feel the harsh reality of cuts. Unlike raising money to start a business or fund a holiday, self-funding for specialist equipment to improve quality of life is a major problem within the UK. It is hard to see those in need turning to the community for support because cuts have resulted in a government unable to support their people. Clearly, more needs to be done.

MODIFICATIONS

Comfort in daily life is key and using the relevant equipment to make day to day tasks easier is essential. From the right pair of glasses, hearing or mobility aid, we all have a helping hand so it is important for people to have a chair, or other required specialist equipment, to be adequately modified. Lauren says: “A wheelchair that has tilt or recline functions can help a person to stretch. Another example would be a wheelchair’s riser

FIND OUT MORE Scope can provide advice on grants and funding available for specialised equipment. Simply visit www.scope.org.uk or call 0808 800 3333

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SUPPORT

HELPING HANDS

It can be difficult to know where to turn to when there is so much information out there, so we have rounded up a selection of need-to-know charities and organisations that can help EMPLOYMENT

Business Disability Forum www.businessdisabilityforum.org.uk The Business Disability Forum is a member organisation that brings together businesses, employees with disabilities, and the government to help make the workplace a more inclusive space. BDF’s members employ almost 20% of the UK workforce so have a look through its membership list for employers actively working to make its businesses disability-friendly. Disability Jobsite www.disabilityjobsite.co.uk Disability Jobsite offers a wealth of knowledge on preparing CVs and acing job interviews. Businesses post job vacancies on their website which are approved by Disability Jobsite.

LEGISLATION AND RIGHTS

Gov.uk www.gov.uk/rights-disabled-person Who better to turn to when you need disability rights and legislation explained than the government itself? Gov.uk gives detailed information on anything you’ll ever need the answer to, broken down into easy to read and find sections. It’s the best place to go to when legislation changes are passed. Disability Rights UK www.disabilityrightsuk.org Disability Rights UK has a range of advice and factsheets to help you get to grips with what your rights are and what you’re entitled to on a range of topics, including housing, employment, and benefits. DR UK also campaigns on behalf of people with disabilities so if you’ve been affected by a grievance, get in touch.

MENTAL HEALTH

Mind www.mind.org.uk Call 0300 123 3393 or text 86463 Mind provides advice and support to those experiencing mental health problems. It can be contacted 9am to 6pm from Monday to Friday and has local support groups and face-to-face sessions. Mind’s website also contains information on a range of mental health topics and has tips for everyday living.

CARERS

Carers UK www.carersuk.org Carers UK has a lot of expert information, factsheets, and guides for carers. If you’re new to caring, Carers UK has an upfront guide with all the information you’ll need. The organisation also has an online forum for carers to chat to each other anonymously.

SEXUALITY AND RELATIONSHIPS

Sexuality and Disability www.sexualityanddisability.org Sexuality and Disability provides guidance on a range of important relationship issues including becoming comfortable with your body, sex and pregnancy. The organisation aims to empower people with disabilities to have a comfortable, safe, and happy sex life as is everyone’s right.

FINANCE

Turn2us www.turn2us.org.uk Turn2us is a national charity that helps people in financial hardship access welfare benefits, grants, and support. Turn2us has an online calculator that will help you work out what benefits you are entitled to. There are also advisors on hand who can help with your personal situation, and it can also provide information on how to get help applying for grants. Scope www.scope.org.uk 0808 800 3333 While Scope covers a variety of disability issues, the charity’s information about finances is especially useful. It offers advice on managing the extra costs of having a disability, what benefits are available, and you can give them a call on their helpline for personally tailored guidance.

YOUNG PEOPLE

Action for Kids www.actionforkids.org 020 8347 8111 Action for Kids aims to enable as many young people to live as independently as possible. It offers support to young people about education, work, and volunteering and provides mobility equipment not available on the NHS to people aged up to 26. Whizzkidz www.whizz-kidz.org.uk 020 7233 6600 Whizzkidz is an organisation that helps nonmobile children by providing workshops, mobility equipment, and guidance to help children with disabilities live life to their upmost potential. If you’re a parent of a child with an acquired disability, you can join Whizzkidz’s parents support network.

HOUSING

Disabled Living Foundation www.dlf.org.uk 0300 999 0004 Disabled Living Foundation offers impartial advice on accessible living and housing. It has info on buying specialised equipment as well as a comprehensive database of daily living equipment. It offers personal advice on its helpline and has a forum for people with disabilities.

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Life outside the

MEDICAL WARD After an accident or diagnosis, the four walls of a hospital room may become your lifeline. The constant medical assurance, guidance, and information keeps you going until you’re discharged. Once you’re on your own, where do you turn for support?

very day medical professionals, from nurses to consultants, are supporting those who may be recovering after a traumatic accident or processing a life altering diagnosis. In the building that never sleeps, welcoming joy and loss, a hospital is a support system for those whose life has started a new chapter. When you’re deemed fit enough to be sent home it can be a time of mixed emotions. You may be happy to get home to your own bed but filled with anxiety about how you will cope without the assurance of the medical team – leaving

hospital is bittersweet. With a revolving door of in and out patients, care after discharge can slide.

WAITING GAME

Cradling your overnight bag and a mountain of self-help and information leaflets – you’re back to reality. Some patients experience a smooth transition while others may have a harder adjustment. Emma Stirling, a health professional working in North Ayrshire Health and Social Care Partnership, felt the pressure

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REAL LIFE

that the NHS is under after being admitted into hospital in early 2017. After experiencing seizures for the first time in her life, Emma was discharged from hospital. She was told she may have a brain tumour: information that would turn anyone’s life upside down. “In Ayrshire and Arran, there isn’t a huge amount of funding for neuro services in-patient. When I was in hospital I was told I would see a neurologist who then didn’t see me because I wasn’t on their list, then I was discharged home,” explains Emma. “The hospital then didn’t get back in touch with me for another six and a half weeks.” Fortunately, Emma’s case was picked up by a neurologist in Glasgow – by chance. “It was good that someone else had picked it up but, really disappointing that Ayrshire and Arran had told me that I had a brain tumour and then sent me home,” Emma remembers. After her first seizure in May, Emma was diagnosed with relapsing remitting multiple sclerosis (MS) in August.

HELPING HAND

“As an occupational therapist, it is my job to support people to live with a health condition in the most positive way possible” Dr Jenny Preston, MBE

Crediting her medical background, Emma was spurred on to ensure an answer to the seizures was discovered quickly. “I knew I had to chase this up. I’m not sure if someone who didn’t have my background and knowledge would know to do that,” explains Emma. Since diagnosis Emma has received a mountain of support from MS-related services, her employer and a strong network of medical professionals who are on hand to help her and family members. Many patients will not have the same understanding of the medical world as Emma, which results in some patients not receiving the vital aftercare they require. The next point of call after leaving hospital – diagnosis and leaflets in hand – will be an occupational therapist (OT). An OT supports out-patients with a variety of specialised disabilities or health conditions. Consultant occupational therapist Dr Jenny Preston, MBE says: “As an occupational therapist, it’s my job to support people to live with a health condition in the most positive way possible by allowing them to continue to do the things within their daily lives which are important to them. We offer a range of support including people attending follow-up clinics; visiting people within their own homes; visiting people within their workplace

to help with any adjustments that may be required; or meeting with families to help them to understand more about the condition and what that means for their loved one.” From the hospital bed to living in the now, at times it can feel like information overload. Hospital staff can point patients in the right direction to get guidance but talking about how your life has changed after leaving hospital can be your saving grace.

UNDERSTANDING

“Service users tell us that they want to be able to contact somebody who understands their condition and who can help direct them to the most appropriate support and information,” adds Dr Preston. Since receiving her MS diagnosis, Emma has used her medical background to get involved with patient reports and MS surveys to further her understanding of MS personally and professionally. Emma has had a relatively positive experience since leaving hospital, but the road to diagnosis pinpoints that there are areas in need of improvement. “Post-diagnosis, I don’t think there was anything else that could have been done. Up to the point of diagnosis there are definite gaps from a neurological point of view. To leave somebody for all that time, when they’ve been in hospital and you’ve given them one diagnosis and then left them to it, that was a low point,” Emma concludes. Leaving hospital can be overwhelming. It’s unfortunate that our NHS system is stretched which leads to failings in pre-or-post-diagnosis, but knowing that OTs are on-hand to provide guidance and care outside hospital is crucial. Leaflets can provide important numbers, but an OT can facilitate meetings with those who have similar experiences. Meeting people who are in a similar situation and sharing experiences and tips can help make for an improved recovery. It always helps to know that lots of people are in the same boat.

FIND OUT MORE If you have recently been diagnosed with multiple sclerosis the MS Society can help, www.mssociety.org.uk or call 0808 800 8000 Disability charity Scope can provide guidance for the next steps if you are newly disabled, www.scope.org.uk 0808 800 3333

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26/03/2018 13:00

REAL LIFE

PROFILE:

AIRBNB

Airbnb is (hopefully) set to change the face of travel once more. Laura Hamilton caught up with Srin Madipalli, accessibility product manager at Airbnb, who talks about the importance of its new accessibility features for the disabled community

irbnb (www.airbnb.co.uk) disrupted the travel industry when it erupted onto the market ten years ago by opening up people’s homes for short-term lets. Now it’s set its sight on a new challenge: it’s going to change the disability travel industry – for the better. When it comes to travel, there is still a big problem in terms of accessibility: six out of ten young people who are disabled feel that hotels don’t cater to their disabilities according to Muscular Dystrophy UK. Airbnb showed its commitment to accessibility when it bought disability travel specialist Accomable last year, which Srin co-founded.

NEW FEATURES

One of the main challenges for accessibility is ensuring people have the right information so they can decide whether a holiday meets their particular needs. Countries have different ideas of what accessibility is, and often there is little or no information available. Srin

“It was incredibly energising to work on these changes, and to shine a spotlight on accessibility” Srin Madipalli

and his team are working to change this and the first step has been releasing new accessibility features on the Airbnb website and app. “I’m thrilled we’ve taken this first step to release the new accessibility filters for guests and hosts across the platform,” says Srin. There are 21 features in total and include whether the bedroom has step-free access, if there are fixed grab handles in the bathroom facilities, disabled parking and much more. “Airbnb worked with a number of disability organisations and individuals to design the filters, and we shared our expertise and tested them before rolling them out to all guests across the platform. It was incredibly energising to work on these changes, and to shine a spotlight on accessibility,” Srin notes.

LEGACY

Srin, who took part in the Paralympic Torch Relay ceremony in Korea to raise awareness of disability in the region, works directly with hosts to make their properties more accessible to guests. Opening up Airbnb properties isn’t just for travellers and holidaymakers with disabilities, however, it’s also about supporting and encouraging hosts with disabilities. “We’re working on initiatives to encourage more disabled entrepreneurs to share their homes and

create accessible, local experiences for travellers around the world,” he says. Srin hopes that the new accessibility filters will create a domino effect within the travel industry. “I hope all types of companies will follow our lead at Airbnb to make all aspects of their business more accessible, so we can truly make accessibility mainstream,” he concludes.

Srin on his travels

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MOTORING

Back in the

DRIVER’S SEAT Keen to get back out there and hit the roads? We take a look at everything you need to know before getting back behind the wheel

or people with disabilities, travelling in the comfort of your own vehicle is about regaining independence and being able to get about effectively without the stress of public transport. First of all, you need to assess your abilities. What controls need to be adapted to help you get about? Which vehicle will work best for you? Speaking to experts at mobility centres will provide an assessment of your personal driving needs. After all, it can be nervewracking getting back behind the wheel, so it’s important to ask for support. Drivers can regain their confidence

to suit you, or you may need a specially on the road thanks to specialist adapted vehicle to accommodate your driving instructors, available through new needs. Disability Driving Instructors (www. disabilitydrivinginstructors.com) in most local areas. MAKING WAVS There’s no rush, so take WAV stands for Wheelchair your time to get back out Vehicle: specially It can be nerve- Accessible there and try not to get adapted motors that allow wracking getting wheelchair users to travel frustrated – it may take perseverance and practice safely without the hassle back behind the before you’re back to your of transferring from chair wheel old driving self. Once you’re to seat. They are designed feeling confident, it’s time to make car journeys as safe to think about what vehicle is and comfortable as possible. best suited for you. Perhaps your Typically, WAVs are converted old car just needs to be slightly adapted large cars with seats removed and the 25 NOVA ISSUE 3

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MOTORING

floor lowered to make more space. They MOTABILITY SCHEME also have ramps at the back so you can As they are so expensive, you don’t have simply wheel into the vehicle and be ready to buy a WAV outright. In fact, you might to go, and most importantly, they have not necessarily need to purchase a WAV fitted restraints to keep your chair in place. to get back behind the driver’s seat. The Some are designed for the wheelchair government’s Motability Scheme lets user to be the passenger, while other WAVs people with disabilities lease brand-new are specially converted to allow the person cars with tax, insurance, and servicing all in the wheelchair to drive without leaving included. This means the only thing you their seat. A WAV’s controls can also be need to budget for is fuel costs. adapted to suit your personal The scheme works alongside needs such as: hand controls to major car manufacturers to operate the accelerator and ensure you get the best price brake, adapted mirrors, or and vehicle to suit your A WAV’s controls steering wheel knobs that needs. To be eligible for will give you more control can also be the scheme, you need to over the wheel. adapted to suit receive either the Higher Rate Mobility Component your needs YOUR FIRST WAV of Disability Living Acquiring a disability or Allowance, Enhanced Rate impairment means there is a of the Mobility Component of chance you will need specialist Personal Independence Payment, equipment, so research is essential. War Pensioners’ Mobility Supplement, or A WAV is an expensive commitment and Armed Forces Independence. it’s important to weigh up your options The Motability Scheme provides a and ask the right questions. Scott Smith at plethora of information on WAV providers WavCompare recommends making a list throughout the UK. You can be safe in the of your requirements before speaking to knowledge that providers will know which motor dealers. kind of modifications are suitable for you, The type of wheelchair you have and with the added bonus of a low or no extra how many passengers you want to drive cost adaptation. are important things to consider. Making Through Motability’s website, you can the most out of what companies can offer search for the right car for you – whether is a key step. Scott explains: “Most of the you need a family car for the kids or a dealers WavCompare works with offer small vehicle to nip to the shops. There’s free home demonstrations, where they also an online search tool to find a WAV will bring a vehicle to your home with no obligation.” supplier in your local area.

TOP TIPS

Keep these top tips in mind when you’re shopping for your new wheels

RESEARCH, RESEARCH, RESEARCH

Check out websites like WAVCompare (www.wavcompare.com) and Motability (www.motability.co.uk) to assess the different WAV options out there – make sure you read reviews from real buyers to get the lowdown.

CHECK THE RIDE

You wouldn’t buy a car without a test drive so a WAV should be no different. Most companies will be more than happy for you to take it for a spin. Go for a drive along some bumpy roads to make sure it’s a comfy ride.

LOOK OUT

There are a few things to look out for with a WAV, including the location of the exhaust (sometimes they’re at the side of the car and this can be a concern if you’re driving in pedestrian areas), the fuel and brake lines (they may be modified in a WAV), and where to find a dealers near you that will service a modified car. Remember to keep all the relevant documents safe: then you’ll be on your way. Check out www.motability.co.uk for more information.

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26/03/2018 15:40

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23/03/2018 11:05

Discussing

DEPRESSION

“My advice to other disabled people would be, concentrate on the things your disability doesn’t prevent you doing well, and don’t regret the things it interferes with. Don’t be disabled in spirit as well as physically” Professor Stephen Hawking

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REAL LIFE

isabilities come in all shapes and sizes – and not all are visible. One illness that never discriminates between rich or poor, sexual orientation, religion, weight, height, ethnicity and everything else is depression. Many people may not realise that depression, or any mental illness, can be classed as a disability. Under the Equality Act 2010, a mental condition is considered a disability if it has a long-term effect on daily life. Depression is the most common mental health problem across the world and its symptoms can be debilitating.

to the Counselling Directory – providing contact information for professional counsellors across the UK – suicide is the biggest cause of death in men under the age of 35. Four in five suicides in the UK are by men and this could be due to the continued stigma to put a brave face on any situation – including acquiring a disability.

You’re not alone. There is help and support out there

DARK CLOUD

A visual representation of depression is of a dark cloud consuming the joy and energy from your life. Turning simple tasks of getting out of bed or going for a shower into a seemingly impossible mountain to climb, it is no surprise depression can stop life in its tracks. “Depression, mental health and disability are quite interlinked,” explains counsellor Martin Rigby. “Having a disability whether physically, sensory or intellectual can cause depression and other mental health issues because of a variety of reasons including: stigma, discrimination, hate crime or the process of adjusting to a new disability.” There are many factors in daily life that can cause depression. Many become depressed due to a combination of different things, others may be living their best life and become depressed for no rhyme or reason. Despite the increased discussions taking place around depression and mental health, there is one group that has a stiff upper lip when it comes to talking about depression.

BRAVE FACE

Men are known for pushing their emotions to the side which means the male population is harder to diagnose with mental health conditions; they are more likely to suffer in silence. Across the UK, approximately one in four people will experience a mental health problem in any given year and figures show that self-harm or suicidal thoughts are increasing. It is harrowing that depression and similar mental health problems are on the rise but more tragic is the fact that men are suffering in silence. According

COPING SKILLS

Born without sight in his right eye, Martin’s vision deteriorated in his late teens whilst he was sitting his A Levels. Having always attended specialist schools for blind and partially sighted students, when he went to university he didn’t have the same level of support. The change was one that was accepted and one he “just got on with”. It wasn’t until later in life that Martin faced his own challenges. “I found it hard when I went to university. I thought because I had been to boarding school I was quite independent and I would be able to cope with the transition. When my parents dropped me off the first time I was quite upset. I felt like I had gone from a sheltered environment into a goldfish bowl,” Martin remembers. “At my school, we all had a visual impairment and we were in the same boat and then I had to adjust to a very diverse place and learn about making friends.” When the dark cloud becomes too much to handle it can seem like there is no way out. Counselling is just one way to discover coping methods that can put your mind back in a more positive space, or simply allow you to focus on a task to pass the time in a healthy manner. Martin threw himself into his studies as this was where he found confidence, but he felt isolated. Turning to counselling as a patient Martin found the sessions life changing, bringing him the strength to leave a teaching placement where he felt pressured and misunderstood to gain counselling qualifications to help others. Now a qualified, person-centred counsellor Martin encourages counselling for people with depression. Getting a sense of self back during a session is the main objective. “I like to ask my clients what they want or need. Quite often people with mental health issues or disabilities don’t

KNOW THE SIGNS

Just like any other illness, depression has many signs and symptoms including:

FEELINGS • • • •

Restless, agitated or irritable Down, upset and/or tearful Empty and numb Isolated and unable to relate to others • No self-confidence or self-esteem • Finding no pleasure in life or the things you used to enjoy

BEHAVIOUR

• Avoiding social events and activities you once enjoyed • Using more tobacco, alcohol or drugs than usual • Self-harming or suicidal thoughts • Difficulty sleeping or even sleeping too much • Loss of appetite leading to weight loss, or eating too much and gaining weight • Finding it difficult to speak or think clearly get asked what they want, they may feel medicalised and feel like a number. If they have just acquired a disability things may be so intense at that moment they may need medication, practical support before counselling can happen,” explains Martin. “You are not alone. There is help and support out there. I appreciate how difficult it is taking that step for people to get help and support, but it is out there. You can work through things and you can make changes – there is light at the end of the tunnel.”

USEFUL CONTACTS Samaritans 116 123 www.samaritans.org Mind 0300 123 3393 or text 86463 www.mind.org.uk Counselling Directory www.counselling-directory.org.uk In an emergency call 999

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DISABILITY

YOUNG PEOPLE

MENTAL HEALTH

HOMELESSNESS

At Sanctuary Supported Living we provide supported housing, move-on accommodation, CQC registered services, including residential care and nursing homes, and floating support. We specialise in services for young people, people with physical and learning disabilities, people with mental health needs and acquired brain injuries, and homeless families and individuals. Our personalised care and support services enable people to identify their goals and aspirations, setting them on their pathway to independence. 0330 1233 247 @SancSL www.sanctuary-supported-living.co.uk

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HOUSING

Making your house a home Acquiring a disability does not simply mean your body changes, it can seem like your life has been tipped upside down. Even your home, once your safe haven, may no longer be suitable. Now accessibility is at the top of your house hunt, it can be difficult to know where to start. Support is available to help you through your big move

WHERE TO START If you’re concerned that your home is no longer suitable for your needs, the first thing to do is to speak to your local council. They’ll be able to offer guidance on your options: whether it’s possible to adapt your home or if you would be better to move into more suitable accommodation.

ADAPTATIONS Depending on your home’s current layout, minor or major alterations may

be needed. Small additions can make a massive difference and can range from installing a second bannister to adding more outdoor lights for better visibility. Larger adaptations including adding ramps, hoists, stair lifts, widening doors, can ensure you are safe and comfortable at home. Minor adaptations costing up to £1000 may be provided by your local council who will be happy to provide more information. Even if you’re not knocking through walls with a sledgehammer, specialist equipment like lifts, hoists, and

reclining seats, as well as adaptations like wheelchair accessible sinks and showers, can be expensive. Before you start factoring in the costs, you may qualify for a Disabled Facilities Grant (DFG). These grants are administered and paid for by local councils’ housing departments and both homeowners and tenants can apply. If your adaptation is estimated to cost more than £1000, get in touch with your local council who will help you through the application process. Local councils also have a duty to adapt current council tenants homes to fit their needs.

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HOUSING

HOME IMPROVEMENT Home Improvement Agencies (HIA) are not-for-profit organisations, based in England, that help home owners or tenants who are disabled, older, and with a low income to repair, improve, or adapt their homes. There may be an HIA in your local area (www. findmyhia.org.uk) that can help with accessibility improvements in your home. Local authorities across England and Wales can also provide financial support for repairs or specialist changes under the Regulatory Reform (Housing Assistance) Order 2002. Through loans, grants, advice on the modifications that will best work for your needs and more, your council is on hand to support your living needs. For those living across the border, under The Housing (Scotland) Act 2006, the support is similar. The Act allows local councils to provide grants, loans or subsidised loans for essential structural changes to a house for your new needs. This can be a comfort blanket for people who don’t want to move out of their beloved home but are in need of adjustments.

If your adaptation is estimated to cost more than £1000, get in touch with your local council who will help guide you through the process

ON THE MARKET While it can be an emotional and difficult decision to move house, there are a lot of great accessible housing options out there. Before you make any decisions, speak to your local council. It will be able to offer you support and advice for your next steps. If you’re a council tenant, you will be advised on allocation policies and waiting lists. You can search for accessible properties on the market using The Accessible Property Register (www. accessible-property.org.uk). You never know, your dream home might just be on the market. There is also a range of companies and organisations that specialise in accessible housing. Habinteg (www.habinteg.org. uk) is a housing provider that focuses on independent living and accessible

GET SUPPORT

If you’re concerned about housing support, adaptions, and finances here are some charities that offer advice:

Turn2us

www.turn2us.org.uk A free service that helps people gain access to welfare benefits, grants, and offers financial guidance.

Scope

www.scope.org.uk 0808 800 3333 Scope gives support, information, and advice to more than a quarter of a million disabled people in the UK on a range of issues.

homes. Habinteg’s housing scheme works to integrate disabled people with nondisabled people to tackle issues of social exclusion and segregation. Ability (www.ability-housing.co.uk) is another accessible living housing provider for people who want to live as independently as possible. Based in England, it has a range of housing to suit different needs. Ability has two branches that work together – one for housing and another for care and support – to ensure that new tenants don’t feel like they’ve been abandoned. For Scottish home seekers, Housing Options Scotland (www. housingoptionsscotland.org.uk) aids disabled people, the elderly, and veterans find the right house, in the right place by providing free and impartial advice.

Disabled Living Foundation

www.dlf.org.uk DLF has provided advice and information on independent living since 1969, so you will be in good hands.

ACT Foundation

www.theactfoundation.co.uk 01753 753900 The ACT Foundation offers help with building work and equipment for disabled people. ACT also provides grants of up to £2,500 as well as charitable grants.

Disability Rights UK

www.disabilityrightsuk.org Disability Rights UK is a charity with excellent online and detailed factsheets and guides on housing needs.

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As a leading recruitment outsourcing provider, Guidant Group can offer you direct and exclusive access to great jobs with some of the UK's top employers. From accountancy to admin, from warehousing to welding we have temporary, contract and permanent jobs available across almost every sector. We are also a Disability Confident Level 3 Leader and have actively taken the lead within the recruitment industry when it comes to disability inclusion. Regardless of your disability, if you’re hardworking and driven there is always room for you here. We’re constantly on the look-out for talented people to join our team and to work on our clients’ programmes, meaning there is no shortage of opportunity! To apply to work at #TeamGuidant please email workforus@guidantgroup.com or visit jobs.guidantgroup.com to view our latest client vacancies.

“I was overwhelmed by how welcoming, understanding and friendly the team were. It wasn’t long before I felt truly part of #TeamGuidant. As well as a speech and language disorder, having ADHD often comes with the stigma of ‘misbehaviour’ which is far from reality. Guidant overlooked the stigma and empathised, focusing on what I can do, rather than what I can’t. It is for this reason that I now feel more comfortable about disclosing my disability in future roles.” Zoe Stabeler – Work Experience Student

Find your perfect place www.guidantgroup.com

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The Intellectual Property Office (IPO) is an inclusive employer who is committed being a great place to work for everyone, where diversity is respected and differences valued. Our positive approach to diversity in recruitment allows us to select the most suitable applicants free from bias. As users of the disability confident scheme, we guarantee to interview all disabled applicants who meet the minimum criteria for our vacancies. We have thriving mental health and ability peer support networks to support our people and enable them to bring their wholeselves to work. Find our more about IPO as an employer at: www.ipo.gov.uk

Inclusive workplace, fulfilling career opportunities

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Linkedin.com/company/ office-for-national-statistics/jobs

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WORK

DISABILITY IN THE RECRUITMENT PROCESS

You’ve got the job!

Job interviews make everyone nervous. If you’re being interviewed for the first time since acquiring a disability, then you have more things to think about and the process can feel strange and new

“

APPLICATION

Kamilah Hale

“You are resilient, passionate, strong and dedicated to overcoming problems. These are huge strengths and skills that you have likely developed while living your life” Amy Nuttal

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WORK

INTERVIEW STAGE

While Kamilah had many positive experiences in the interview process, all it takes is one negative experience to knock your confidence. “The skills part of an interview went very well and I was told I answered everything correctly,” she recounts. “In the second part, a manager stared at my wheelchair immediately. I wasn’t allowed to finish a single answer as he kept cutting me off to ask the next question. He didn’t make any notes either. Unsurprisingly, I didn’t get the job.” Kamilah eventually got a job in a startup, which are celebrated for their flexible attitude towards remote working. But she highlights another aspect of recruitment that disabled people face: talented people with disabilities are being underpaid. “I was routinely applying for jobs that were for less experienced people, and some employers were keen to get me in as it was a good deal for them,” she says. However, there is some good news. Amy says that misconceptions in recruitment towards disability are not the norm. “What we do know from dealing with employers is that in reality, there is very little bias when it comes to disability, as long as candidates are totally honest and transparent during the recruitment process,” explains Amy. Kamilah has since taught herself to code and started an online tutoring company, where she hopes to employ disabled people in the future.

RETRAINING

There is plenty of free support out there, including recruitment agencies that can help you retrain and upskill for free. It may be the case that you want or need to retrain depending on both your needs and requirements. Employability Derbyshire, like many employment agencies, is free to use. It offers a combination of training, onsite work placements with suitable local employers in a role and sector which matches their skills, personal mentoring, training and initiatives, until they are ready for the next step. The non-profit organisation then works with people from a range of disadvantaged backgrounds, including domestic abuse and probation programmes, to obtain the skills needed, and bag the dream job with career advice, application and CV support. “I am deaf in one ear,” says Amy. “I was offered employment within the company. I am walking proof that the programme works.” The government also provides support – simply contact your local Job Centre for more details about Access to Work and Specialist Employability Support.

STAYING PUT

Not everyone wants to move after acquiring a disability – and some companies are both flexible and supportive. Tom Dowling, Risk Advisor at Allianz (www.allianz.co.uk) was involved in a car accident while on the job in 2011, but with the help of his managers and occupational therapists, works three days a week. “I suffered a brain injury, so externally I look fine, but I get mentally fatigued easily,” he explains. “Allianz provided me with lots of support - my manager visited me and I didn’t have to worry financially. I wanted to get back on the road, although Allianz always assured me there were other options.” For Tom, returning to work was a huge achievement. “My condition will improve over time, but I will never get back to how I was,” he says. Tom’s work still involves driving, although his longest drive has been cut down to an hour. His workload has shifted to working reduced hours and

Tom Dowling

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We believe organisations with both diverse workforces and inclusive cultures serve their people and society better. As a government department, weâ&#x20AC;&#x2122;re responsible for delivering areas that are fundamental to the economic success of the UK. Weâ&#x20AC;&#x2122;re committed to making our workplaces accessible. Everything from modifying or providing the right equipment to home working and tailored training. Our Capability Action Network (CAN) champions colleagues with disabilities and long term health conditions and provides confidential advice to join up departmental support and specialist groups. Find out more about opportunities at BEIS.

Visit: www.vercida.com/uk/employers/departmentfor-business-energy-industrial-strategy

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23/03/2018 11:13

WORK

Getting back to work ALL THE SUPPORT YOU NEED

Whether work is just a job for you, or a core part of your identity, it’s important that you find a career that’s fulfilling and meaningful

person with disabilities is twice as likely to be unemployed as someone without disabilities* and 18% of working adults in the UK are disabled. Getting disabled people back to work is important for the economy – a 10% rise in the employment rate in disabled adults would contribute an extra £12 billion to the Exchequer by 2030. The government recognises that we all have our individual talents – we just need a chance to use them.

EMPLOYMENT

transferable and digital skills which you may need more training in to get up to speed. Remploy supports you to match your core skills to job specifications. This means that you are matched with industries and jobs that are relevant for your skills, and SUPPORT you’re not being pushed into There are specific organisations a job that doesn’t fit. It also that focus solely on places a specific emphasis The Shaw employment, like on mental wellbeing. disability employment Trust helps “Remploy provides a wide specialist, Remploy over 50,000 range of tailored support (www.remploy.co.uk). people every services to help people Remploy has a lot of year get back with a disability or health experience: it has helped condition find work or over 150,000 people into to work stay in a job. People can also employment over the years. access our digital service where It understands the importance they can chat to an online advisor of soft and hard skills, as well as

for advice and to help them set and achieve their goals,” says Amanda Craike, pr manager at Remploy. Remploy breaks everything down step-by-step from application to interview, so that you know what’s expected of you and your future employer at every stage.

GET SUPPORT Remploy www.remploy.co.uk 0300 456 8110 Advisors are also available to chat online. The Shaw Trust www.shaw-trust.org.uk 0300 123 7005

*ACCORDING TO SCOPE

“The biggest barrier to getting back to work can be confidence: it can really be knocked,” says Clare Gray, disability advocacy advisor at The Shaw Trust (www.shaw-trust.org. uk). The charity works with disabled people to help them get the support they need, help them to understand relevant legislation, and support people with access to funding, including the government scheme Access to Work. The Shaw Trust also works with various local partners across the UK to help people gain new skills. The Shaw Trust has a holistic approach. It offers a range of programmes and support via its partners to help people with every aspect of their life, from housing to mental health. The trust also helps support organisations employ people with disabilities, as companies themselves need help and advice, too.

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NHSE D&I Nova Ad PRINT READY aw.pdf

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10:11

SPORT

DISABILITY SPORT

GET SET, GO Olivia Newton-John once sang ‘let’s get physical’, and she was definitely on to something. Exercise is an important part of leading a healthy lifestyle, and disability should be no barrier to getting active. There is a starting line waiting for you to take your position

iving life with a disability does not mean you have a get out of jail free card when it comes to exercise – sorry, not sorry. Regardless of ability, there is one sure fact that staying active is not only good mentally, but it is also proven to relieve certain symptoms caused by an impairment or condition. Everyone has their own take on what is fun when it comes to exercising, from gym buffs, football fanatics, extreme sports to sweating it all out at hot yoga; there’s a sport for all abilities and interests. The world of inclusive sport is ready to get you fit and active.

WELLBEING

Acquiring a disability is difficult in a number of ways. It can be a struggle both mentally and physically. Discovering, or even re-discovering sport, may not be on the top of your to-do list, but it is a fantastic way to rejuvenate your sense of self. There is a lot of talk these days about wellbeing so it is no surprise that yoga, Pilates, and similar low-impact sports are the top trend of the moment. Popular amongst people of all ages and abilities, low-impact sports rarely cause injury and are essential to building core strength and increasing balance. If you are diagnosed with multiple sclerosis (MS) or adapting to life with reduced mobility, yoga is an easily accessible option where you can enjoy the benefits of exercise. Yoga is also known for its positive impact on mental health: after all, it is important to look after both our mind and our body.

MAINSTREAM

Do you still long to play the beautiful game? Feel the rush of adrenaline when you score a goal? Are you convinced that your days of playing football are behind you? Then you would be mistaken: even football is accessible. Electric wheelchair users can get back on the pitch with the ever-growing game of powerchair football. The sport is exciting and thrilling in many ways, not just for the fact it is the only active team sport for people using powerchairs. Fast paced, dynamic, inclusive and entertaining to play and watch – it is no surprise powerchair football has a world cup tournament of its very own. Or why not try out goalball? Since 1946, visually impaired players have been getting involved with football in their own unique way. Two teams of six players work together to throw the ball into their opponents’ nets – of course, it’s not as easy as it sounds. Players must wear opaque eyeshades at all times and there are only strings to indicate court markings. Accessible football takes the game to a whole new level.

“Painting disabled people as superheroes is often criticised... but regardless of ability there are inclusive sports that everyone can get involved with”

PARAS

Martine Wright, Jonnie Peacock, Samantha Kinghorn, and many more famous athletes have gone on to win medals on sporting stands across the world. They’re not like other sporting stars though: they achieved their sporting dreams after acquiring disabilities. Terror attacks, meningitis and accidents left their bodies feeling and looking different – but it didn’t stop them from going for gold. It can seem that there are many sports that may not be accessible, but they’ve proved otherwise. Painting disabled people as superheroes is often criticised and not everyone can win a gold medal, but regardless of ability there are

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inclusive sports that everyone can get involved with. Athletics, horse riding, hockey, fencing, volleyball, racing, to name a few, are all official Paralympic sports. There are also sporting centres and clubs all over the UK that can provide accessible training sessions for many activities recognised by the Paralympic Games. If you’re dreaming of gold or just want to get fitter then look no further.

THE WILDCARD

For those really looking to step outside their comfort zone or to try out the latest sporting craze, it’s time to hit the pole. Disability comes with a lot of

misconceptions and preconceived notions and it’s important you get rid of them. Pole dancing also comes with a bag of stereotypes and raised eyebrows, so why not wash away those thoughts, too? The rise of pole dancing, also known as pole fitness or simply pole, has been overwhelming in recent years – there are even talks of it becoming an Olympic sport. It is a fantastic workout combining aerobics and dance, and it is inclusive – absolutely anyone can do it. Man, woman, disabled or non-disabled, pole is the wildcard fitness trend that will get you feeling stronger and healthier than ever; and you’ll be oozing body confidence. Pole is becomingly increasingly

mainstream and popular, and more pole-centred gyms are popping up across the UK. Recent competitions including the World Championships have heavily featured disabled performers - who have gone on to win in their categories including wheelchair user Erin Clark and Deb Roach, who was born with one arm. Shake off the cobwebs and rock your gym gear. The sporting world is waiting for you.

FIND OUT MORE Get out and get active with a full list of accessible sports over at www.disabilitysport.org.uk

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Park House Hotel Sandringham

Leading the way in disability friendly holidays We can provide expert and discreet care support so that you can fully relax and recharge.

Park House Hotel is an impressive Victorian country house set in the beautiful surroundings of the Sandringham Estate in West Norfolk. For 30 years we have been providing award winning breaks to disabled guests and their companions who return year after year. With all the features you expect from a first class hotel, and an exceptional level of disabled access and support, we make sure your holiday is totally revitalising. The hotel boasts an enviable location with easy access to the historic market town of Kingâ&#x20AC;&#x2122;s Lynn and the picturesque Norfolk coast.

To make a booking or receive a brochure pack please contact the Reception Team on 01485 543000 quoting NOVA2018. You can also visit our website www.parkhousehotel.org.uk to find out more.

www.affinitydesign.eu

eâ&#x20AC;&#x2122;

Wheelchair accessible holiday villa in Spain

st 02

Affinity Design established in 2008, is developing accessible holiday villas for disabled people, in particular those with high dependency needs. We are pleased to introduce the first of what we hope will be an extensive portfolio of similar properties. This project has been designed and developed by a disabled person conscious of the need for quality holiday accommodation with a high level of equipment provision, including electrical ceiling and mobile hoists and a private swimming pool also with a hoist. Equally important, the area surrounding the location of this villa is beautifully flat which any wheelchair user will more than welcome!!!

Tel: +44 7914 803 586

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Email: info@affinitydesign.eu

Web: affinitydesign.eu

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TRAVEL

Bring me that

HORIZON

Disability shouldn’t be a barrier to going on holiday, travelling the world and enjoying yourself. After all, everyone deserves a vacation

f you have a newly acquired disability, going on holiday might seem like an unsurmountable challenge instead of a period of relaxation. There’s a lot to plan and organise, and it can be hard to know where to start. One barrier to travel can be lack of confidence: it’s understandable to feel nervous about going to a different country, and dealing with an unfamiliar culture and language. Disability doesn’t have to stop you travelling: you can still explore new countries, try exotic food and see the

world. The key to feeling confident about your trip is to be prepared.

GET ORGANISED

Travelling with a disability means extra care when it comes to organising your holiday – luckily we live in the digital age. “When venturing abroad for the very first time as a disabled person or wheelchair-user, many underestimate the preparation and planning required prior to travel,” says Lynne Kirby,

managing director of Enable Holidays (www.enableholidays.com), which plans holidays and excursions for people with disabilities. It’s a good idea to heavily research where you want to go via the internet, and people’s online reviews, pre-book everything and explain any support you may need. Depending on the country, accommodation and travel options available, there may be apps, specialist websites and forums with essential information. “TripAdvisor has been invaluable to me,” says Shani Dhanda,

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TRAVEL

a disability advocate with osteogenesis imperfecta, also known as brittle bones, who has spent time travelling round India: “Looking at the images and seeing the lay of the land is so helpful.”

AIRPORTS

Security checks, queues and passport control – the airport can be stressful and understaffed: it’s imperative that you get to the airport early, so you don’t feel rushed. When visiting Israel, Natasha Lipman, a disability blogger, had trouble at the airport due to language barriers and having invisible disabilities. Her top tip is to ask for help at airports and book everything you need beforehand. “It makes a huge difference to my ability to enjoy the holiday,” she says. Extra stress at the airport can be hugely tiring and draining. Shani agrees: “They always want to check the wheelchair in with the luggage,” she says. “You have to spend a lot of time educating people. What I find easier, especially in a foreign country, is to explain what support you need, rather than going into all the medical stuff which baffles them.” Another good idea is to find out what policies the airlines have online as each will be different, and see what they can offer in terms of help and support.

ACCESSIBILITY

Some destinations are better than others when it comes to accessibility. According to Lynne, the best cities for accessibility are Berlin, Amsterdam, Barcelona and New York. If a city break isn’t for you, Tenerife, Florida and Jersey all make excellent places for disabled holidaymakers to visit. Berlin is often touted as the number one accessible city, but as Natasha points out, it’s still not perfect. “The train stations were accessible, but there were no drop curbs in Berlin. I wouldn’t have been able to go independently around the city,” she notes. Another thing to bear in mind is that other countries’ ideas of accessibility might not be the standard that you’re used to. “I invited a friend out to India when I was travelling who is a wheelchair user,” says Shani. “I pre-booked everything to make sure it was sorted, but their understanding of accessibility is very different. The accessible hotel room had two steps up to it, and we couldn’t take her chair inside the Taj Mahal, she had to be carried by her sister.”

“I have a very visible disability. People’s reactions are interesting when you’re travelling. People respond differently due to cultural reasons”

Shani Dhanda

OUT AND ABOUT

For people with disabilities, a flying visit may not be an option when you have to factor in recovery time. “I generally go away for more time than I would have liked to,” says Natasha. “I need to recover from flights and going out, too. I usually go on holiday for 10 days instead of five.” As well as planning a longer holiday, matching up to-do lists is also a priority if you go on holiday with a non-disabled person. Natasha encourages people to take advantage of city bus tours as an easy thing to do together. She suggests scheduling in important rest time when your travel partner wants to do something that you can’t join in with. “When we were in Israel, I had a rest day while my boyfriend went for a hike,” Natasha says. “Trying to find ways to do things together is important, too, but I don’t want him to miss out.” Choosing your destination carefully is important as well. While you may want to see the Eiffel Tower, Paris is notoriously difficult to navigate as a person with disabilities. But there are also cultural issues to think about. “I have a very visible disability,” says Shani. “People’s reactions are interesting when you’re travelling. People respond differently due to cultural reasons. In Asia, disability can be stigmatised, but it’s very much a generational thing. I’ve

ACCESSIBLE HOLIDAY SPECIALIST If you would like an expert to organise your holiday, contact an accessible holiday specialist. They do the work on your behalf, which saves you hours of emailing and numerous phone calls. Lynne says: “If you do decide to go with an accessible tour operator or travel agent, please check they are members of ABTA (the travel association) and ATOL (the aviation licencing body) for your financial security and peace of mind.”

learnt to accept that people will notice me, and I engage with it. I love talking to people, but it’s annoying when people take photos without my permission.” While you can’t control other people’s reactions to you, it’s something to be aware of and take into consideration. For Shani, nothing can dull the shine of travelling. “I’m passionate about travel,” says Shani, who has visited 29 countries. “There’s a whole world out there.”

Natasha Lipman

Follow Shani and Natasha’s travels on Instagram: @shanidanda @natashalipman

Shani Dhanda

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REAL LIFE

Strutting the catwalk with a

Disability W

hen Georgina was young, she loved acting and dancing. However, when she was 10 years old, she started to experience repeated bouts of tiredness. “I struggled to find the energy to function”, Georgina says. “I remember coming out of a dance class, crying, and I said to my mum and dad: “I just can’t physically do this anymore” and that’s when they knew we needed some answers.” She was diagnosed with myalgic encephalomyelitis, more commonly called chronic fatigue syndrome (CFS/ME). “It affects every aspect of my life every day,” she explains, “it’s a long-term debilitating

fatigue which I get no relief from, with other symptoms of joint muscle pain throughout my entire body, headaches, poor sleep, poor concentration and anything I do increases my symptoms.” Being diagnosed aged 13 turned Georgina from an active performer who loved the limelight into an exhausted and withdrawn teenager.

ALICE IN WONDERLAND

PIC: ©ZEBEDEE

Diagnosed with chronic fatigue syndrome at 13 years old, Georgina Wasdall thought that her love for performing was over. That was until she found Zebedee, a modelling agency that represents people with disabilities. We spoke to the 18-yearold about how modelling changed her life

venture into modelling helped her out of the sinkhole of depression. “It completely changed me and chipped away at my shell,” she says, “it brought me into myself again.”

LEASE OF LIFE

Georgina says that modelling brought a Georgina compares her post-diagnosis renewed sense of purpose back into her years to “tumbling down an Alice in life. “It brought out a side of me that I Wonderland hole.” As her condition didn’t think I had, a more confident and worsened, Georgina had to leave school happier side.” and be home schooled instead. “I grieved Georgina says that although Zebedee is for the life I had lost and resented the breaking ground with making modelling life that I had,” she says. “I became very inclusive, the industry has a long way to isolated and withdrawn; I didn’t have any go. “Growing up, I didn’t see anyone in the friends, didn’t leave the house.” papers or on the catwalk who has a The turning point for Georgina disability and there was nobody came during a 2015 trip to to look up to in the modelling Disneyland. “I went to or acting world. Whereas Disney and realised that if I I grieved for now, Zebedee has set this could have experiences like the life I had lost up and there’s more people this then maybe life still on TV and the catwalk and resented the could be good even with with a disability. Even life that I had my restrictions.” now, as an 18-year-old, it This change in attitude inspires me.” led Georgina to having Georgina is overwhelmingly the confidence to reach out positive about her future. “I’ve to Zebedee Management (www. worked really hard to get out of that dark zebedeemanagement.co.uk), a modelling place. Modelling has done so much for my agency that specialises in representing life… it’s a great journey I’m on.” people with disabilities, after her mum saw an ad: “I got in touch and they asked if I could do a photoshoot and that was For more information, contact Action for the beginning of a journey.” Georgina’s ME at www.actionforme.org.uk 46 NOVA ISSUE 3

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Support. When your insurance claim is challenged. Insurers will often refuse or end a claim, using policy exclusions, surveillance and visits by their own doctors. This may leave you distressed and in real financial hardship. We can help. Our specialist team has a proven track record of successfully challenging insurance companies on behalf of people with long-term illnesses, including ME and Fibromyalgia. We will support you all the way and make sure your claim is properly dealt with.

For expert advice, please contact partner James Millar Craig: 0800 923 2073 james.millarcraig@roydswithyking.com roydswithyking.com

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A career of choice

For further information please refer to our careers website www.allianz.co.uk/careers

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