Family Care Issue 47: Peace by Family Care

just for you!

WITH CARERS NZ | ISSUE 47

NEW ZEALAND

Help others, help yourself

COVID-19

PEACE

UPDATES

Stay Prepared Vaccination News

let it be

Latest Advice

PICK YOUR OWN! Delicious destinations CHANGING PLACES Accessible spaces HOME COMFORTS Travel gear advice CARERS NZ + PSA Looking out for you CAREWISE Supportive employers

GIFTS GALORE

sleep

swim

4 read a book cuppa tea

hot bath

5 6

Recipes to make life easy, with Donna Hay

ONE PAN

garden meditate

listen to music

books, learning, recipes, useful things, Your Say, gifts + more!

1 2

be in the

Plus...

BE IN TO WIN!

TIME OUT

Fun planning tool!

Supporting families wh nau and carers through COVID-19 Hang in there - we’re getting through. It’s been a tough time but if you need a listening ear or practical assistance, register at https://www.wecare.kiwi

A treat to look forward to Thanks to wecare.kiwi partner IHC we were able to provide 300 family wh nau carers with $30 Warehouse cards to buy something for themselves. We loved reading your heartwarming stories and seeing your photos. Have fun with your cards!

I have 3 children aged 16, 12, and 10, all of whom have ADHD and autism. I home school my oldest but also my other two when times get hard for them at school. Lockdown has been full on as my son’s carer cannot come to take him out for his usual activities. There is no such thing as a break until things settle back down. Every day is more tiring than the last. I would treasure a voucher, to look forward to buying myself something to make life a bit brighter.

I care for and am the mother of my 8yo daughter who is living with Bronchiectasis (an irreversible lung condition), chronic asthma, autism, and ADHD as well as another diagnosis under investigation. It’s been a pretty rough time recently and my daughter has been in and out of hospital a lot in the last month (we spent the first 2 days of lockdown in hospital). I would love to be considered for this voucher as I am not the best at self care and it is a goal of mine to improve this.

I have a gorgeous wee dude, 13 years old. My son has many challenges but makes anyone in a room smile with his incredible personality. His smiles are priceless. He can’t walk or talk and is tube fed. He lost his sight in 2015. He has major neurological issues but loves Mickey Mouse and music and singing. If I was to get a voucher I’d spend it with him.

I am a parent of a non-verbal 13 year old. I would like to nominate my Mum for your $30 voucher giveaway. At short notice, hours before NZ went to Level 4, she took her two adult nieces into her home bubble, and a day later her sister was discharged from hospital to her house from palliative care after a massive brain bleed days before. My Aunty passed away 5 days later at my Mum’s house. You’ll know the restrictions around COVID-19 and funerals, but when my Aunty left the house with the funeral directors the day she died, that was it. No visit to the funeral home, no funeral. This was all very surreal, with no closure. I haven’t even been able to give Mum a hug yet. I’d love to bring a smile to Mum’s face (can only see it with FaceTime of course!) with a voucher! She cared for her own Mum for months before she passed away several years ago as well, and is a respite carer for my children, so I think she is definitely deserving of some kindness.

Access to food, and food poverty, have concerned many in Auckland in the latest lockdown. We thank Accelerating Auckland and TOA Pacific for working with us to get food to a 16 year old whose family had been trapped in the North. “Community organisations are whānau – COVID-19 has been a reminder that when someone needs help, it doesn't matter whose network they are part of. We just work together to sort it out,” says Carers NZ chief executive Laurie Hilsgen. Many of the organisations involved with wecare.kiwi are participants in the Carers Alliance, a coalition of 50 national not for profits collaborating to make life better for New Zealand's 1 million plus family, whānau and aiga carers.

I am a mother of two (2 year old girl & 8 month old boy).I stopped working when we found out I was pregnant and planned to go back when our first baby was born but God has other plans for us. I am a full-time carer for my first daughter who has Cerebral Palsy, seizures and developmental delay. Thank you for remembering someone like me.

I am a Mum and full time caregiver. At this stage I have been caring for my son on my own since lockdown started due to staff shortages. I am exhausted. My son has autism and is non-verbal; he also has Lennox Gastaut Syndrome which is a degenerating seizure condition, so needs 24/7 care. With my own health needs, things are a struggle. What keeps me going is his smile. I think if he can do it so can I. We are on our own and can only rely on online shopping with a tight budget so something like this would be very much appreciated and bring a smile to my face. Thank you!

Mum cares for my sister who is 34 and has physical and intellectual disabilities. She normally lives in a residential flat situation, but due to problems in the flat she had to move home. Mum has had a very challenging few months caring for my sister and trying to work with the service provider to resolve the issues in the flat. We had just started a very gradual transition programme back to her flat, with short day visits and so on. Then lockdown hit and my sister and Mum have been at home 24/7. Mum definitely deserves a wee treat, so if you’re able to send her a voucher we would be very grateful. She has worked so hard to support and care for my sister for her entire life, and has done an amazing job.

I am the mother of a 3 year old boy who has Lissencephaley. With COVID-19 we are doing all his personal cares and respite during this time. I saw on Facebook your amazing gesture and thought it was really kind.

First off, what an amazing thing to do. Thank you so much. COVID-19 and the second round of lockdown has been very hard on both myself and my son. He turned five in lockdown, and has severe autism and global developmental delay. He’s completely non-verbal but the happiest, bubbliest kid out there. With gorgeous blonde hair and blue eyes, he melts the hearts of all! We are only a year into our journey as family carers for a disabled child and it's definitely been a tough road so far. We would be very grateful for a treat!

wecare.kiwi was contacted by a woman who has been a full-time carer for her mother who has rapidly progressing dementia. She is also having custody issues with her ex-partner, adding more stress. She had not been able to access respite for months as the facility that had been offered to her was not suitable and she couldn’t leave her mother there. There was some support worker help but no opportunity for a break and lockdown had made this infrequent. She contacted wecare.kiwi for support but wasn’t sure what could be done, she said she just wanted to talk and cry and have someone listen. We looked at different options and she was able to bring a family friend who lived on her own into their bubble to provide support. wecare.kiwi also put her in touch with Alzheimers NZ, which provided phone counselling, and she is also now doing an online caregivers course which is giving her insight into her mother's dementia and helping her deal with her own emotions around this. At last check-in the family is doing much better.

Support through the pandemic is freely available. Register for advice and help at https://www.wecare.kiwi

Supporting family carers every day! Carers NZ provides advice, information, support and advocacy for anyone caring for friends or family members. All of our services and information are free to carers and those who support them. Please help to keep our 0800 helpline, email hotline, web and printed resources, and other services available to New Zealand’s carers at no cost. Thank you for helping us care for family carers!

Your Details Name ______________________________________________________ Email _______________________________________________________ Physical Address ___________________________________________________________________________ Phone _______________________ Postal Address (If Different) _________________________________________________________________ Mobile Phone _________________ Town/City ______________________________ Post Code ______________________________

I’d like to support family carers

 One Off Donation (Donations over $5 are tax deductible)  Monthly Donation (I authorise Carers NZ to make automatic deductions every month from my credit card until further notice)  $25  $50  $100  $200  My Choice $ ______________________ All donations will be used to keep Carers NZ services and information free for family carers and those they support: infopacks, Family Care magazine, e-newsletters, 0800 helpline, email hotline, advocacy, and keeping carers connected via social media and in-person meetings and events.

Payment method

 By credit card:  Visa  Mastercard

Card number 

  

Name on card (please print) ________________________________________________________________ Expiry ___/___ Signature _________________________________________

 Or by bank deposit/internet banking Account name Carers New Zealand Trust Account no 12-3096-0298326-02 Reference Donation Would you like a copy of your receipt by email?

 Yes  No

Please scan and email your completed form to centre@carers.net.nz or post it to Carers NZ, Freepost # 256234, PO Box 47-385, Ponsonby Auckland 1144 (no stamp required). Alternatively, phone us and we can process your credit card donation in person: 0800 777 797.

0800 777 797 l www.carers.net.nz l centre@carers.net.nz

feature

this time features

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regulars

Home Comforts Travel things to bring

Changing Places Comfortable access

20 Reader Gifts!

One entry, all draws

Complete and return our easy entry form and you will be entered into every reader gift draw! One entry per person please. Just return your form to us and you’re in to win! SEE OUR GIFT ENTRY FORM ON PAGE 10

One Entry for All Gift Draws! Just complete and return this form and you will be entered into every draw! One entry per person please. We'd love to know more about what you like. Please tell us about yourself (tick any that apply)!  

I am a family carer for another/others

 

I care for a child or young person with a disability

I am a 'self carer' managing my own health and disability needs I have (or assist someone who has) these conditions or health issues:

_______________________________________________________ _______________________________________________________ _______________________________________________________ I work in health and disability   I work for a community organisation  I share my magazine with others (if so, how many others see your copy of Family Care: _________ )

I would most like to win these reader gifts:

Fortune Teller Respite choices!

New Program Alzheimers NZ

29 36

Pick Your Own Peaceful pleasure

One Pan Perfect

Peace Relaxing ways

25 27

Your Say Feedback

Books Music Films Watch listen read learn

Useful Things

Aids, equipment, fun stuff

Counselling Find help

CareWise

Carer friendly employers

COVID-19 Guide

Latest advice

Recipes from Donna Hay

Heading

I have just completed a questionnaire sent to me by your organisation. I didn’t know of your existence until I received this and have already gone to your website to have a look at your information. I am delighted to know you are there and will read your web pages with interest. Looking after my husband following an accident, five and a half years ago has completely changed my life as well as his. Trying to put a brave face on and make the most of life has been our aim. There are a lot of people worse off than us and plenty of people in the cemetery would swap with us. There is always something to be grateful for and I think we do very well at keeping our morale up and supporting each other. However it can be hard and sometimes difficulties arise which seem like the straw which is going to break the camel’s back and overwhelm me. It is so nice to know that there is an organisation out there that cares for carers and is actually doing some research. So thank you for doing this research and giving me the opportunity to tell someone how I feel. Friends may ask how you are but who wants to hear what’s really going on. It’s easier to say we’re fine than to tell them you are depressed, lonely and exhausted. I am grateful for the help we have been given over the years and I understand how complex and difficult it is to support families in these circumstances. I know these organisations do the best to help where they can and resources are not unlimited. I just wanted to say thank you and look forward to gleaning some helpful advice from your web pages,

NICKY FLINT

1. _____________________________________________________ 2. _____________________________________________________ 3. _____________________________________________________ Name ___________________________________________

www.carers.net.nz

Physical Address __________________________________

________________________________________________ ________________________________________________ Mailing Address (if different) ________________________

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Value our work Without you, NZ would be worse off! You do outstanding work every day at your home for loved ones and the wider community. You are skilled and dedicated. But you also carry a lot on your shoulders. The PSA is here to support you and connect you with other family carers to share experiences and voice your concerns. For years our union has supported thousands of the family carers who are paid via ACC providers, and we are now extending this professional support to the growing number of family, whānau and aiga carers who receive payment for some of their mahi aroha.

Welcome to the PSA! The Public Service Association Te Pūkenga Here Tikanga Mahi is the largest union in New Zealand. Our 80,000 members work in a uniquely diverse range of occupations, including home support, mental health and addictions, disability and social services, as public servants and much more. For over a century the PSA has advocated for better pay and conditions of our members, but also for public and community services serving individuals and communities in need. New Zealanders deserve a health and disability system that fully funds the best possible family care and looks after the people who provide it. Your wellbeing is important to ensure that you can provide the best possible care for your loved ones.

What the PSA can do for you The PSA’s close relationship with Carers NZ goes back decades, but for the first time we are formalising this alliance. More family, whānau and aiga carers are being paid for their work, and we want them to understand the benefits and options available to them as members of the PSA. PSA membership is an affordable way to know you have protection if you ever need it, whether from our organising or legal teams. We lobby the Ministry of Health, ACC, the DHBs and whoever else it takes to ensure your ideas and concerns are heard. Members also have access to additional travel and lifestyle benefits through PSA Plus, including holiday homes and special discounts.

The PSA’s achievements for family carers like you Our union’s work has contributed to and actively supports Enabling Good Lives, and we campaigned for increased Funded Family Care pay rates. We support Mahi Aroha – Carers’ Strategy Action Plan and advocate for your interests beyond the strategy. The PSA is also a carer friendly employer, as a participant in Carers NZ’s CareWise programme to support working carers. The Care and Support Equal Pay Settlement is one of our biggest achievements, and while support workers still face problems around things like in-between travel and guaranteed hours, we’re proud to look back at a deal that delivered pay rises of up to fifty percent. The Settlement now applies to some family carers, and we hope to negotiate its renewal and extension in 2022.

Who is this for? You are eligible to join our union if you are a carer paid to support friends or members of your family, whānau or aiga, or if you provide support through individualised funding. Union membership is an opportunity to connect and network with others, so you can work together to improve your lives. The PSA is a collective of your peers - you are the union.

Join today by going to www.psa.org.nz/join Gross annual salary

Fees per fortnight

Under $19,629

$4.40

$19,629 - $42,744

$8.90

$42,745 - $54,999

$15.40

$55,000 - $74,999

$18.20

$75,000 - $99,999

$20.00

$100,000 and over

$21.50

Carers NZ is the national peak body supporting our country’s family, whānau, and aiga carers. It acts as Secretariat for the Carers Alliance, a coalition of 50 national not for profits. The annual value of family carers’ largely unpaid work is $10 billion (Infometrics). We value the mahi aroha of the workforce represented by the PSA and look forward to drawing on the union’s 100 years of expertise to improve recognition, support, and equal pay and workforce rights for family, whānau, and aiga carers.

reflections

Rest and peace

These are the months of whānau, warmth, the fruits of summer, and rest. Despite any work or life pressures, summer brings out the best in us. This year will be the same, despite the challenges of COVID-19. I hope you find this issue interesting and that its wellbeing articles give food for thought. We enjoy putting every issue of Family Care together, knowing it might be a bit of fun mail arriving in your letterbox – and that you might have the time to read it in the coming period when relaxation is hopefully on the cards. Carers NZ has been busy through the pandemic. We’ve enjoyed talking to many of you in person, or by email. We’ve witnessed your navigation of the vaccination system, conversations with support services and workers, and also with family – it hasn’t been easy, has it? I am thinking as I write this of a grandmother who has had to ask her unvaccinated grandchildren not to visit her very ill husband; we bear witness to the difficult situations and conversations families are having around the country this year. Nonetheless, the resilience of New Zealanders is amazing. We are getting through despite the challenges. Thanks to those of you who have completed our State of Caring survey and also our end of year respite survey. We have a solid picture about what life is like for family, whānau and aiga carers. We’ll be sharing what you’ve told us in new reports in the coming months. The picture shows strength, courage, skill, kindness, and also vulnerability. More than 60% of family carers haven’t had a break from helping others for at least six months – on top of (for many) working from home in paid employment and providing home schooling through COVID-19. We all need a rest at the moment, you especially. May you have it, and may 2022 be better for our country and the world. We are here for you if you need us – please get in touch if you do!

FamilyCARE Editor Laurie Hilsgen Contributors Changing Places, Donna Hay, IHC, Angelique Kasmara, Virginia Linton, Dr Kathy Peri Advertising + Inquiries centre@carers.net.nz Phone (09) 360 7221 Publisher Family Care NZ PO Box 47385 Ponsonby, Auckland 1144 ISSN 1177-3340 Print 2230-4819 Digital Disclaimer Articles and opinions do not necessarily reflect the views of Carers NZ, Family Care, or advertisers. Winners of our giveaways will receive their gifts within 6-8 weeks of each draw. By entering a reader gift draw your details may be provided to the supplier of that gift. If you do not want your details to be provided, note this on your entry form. Copyright is owned by the creators of images and graphics used in Family Care; see individual credits. Cover image Izzzy71, shutterstock.com Copyright Family Care. All rights reserved.

You'll find our entry form for all reader gifts on page 10! Thank you for supporting this issue

Photo credits, shutterstock.com unless specified otherwise. P5: Dionisvera, Annette Shaff, Good Studio; P7: Leon Chen; P9: Apichon Tee, Tristan Tan, Rook76; P10: DJ Taylor; P12: Annette Shaff, Mini Stocker, Camera Man NZ, Mara008; P18-19: Jenn Hooper, Changing Places NZ, Fizkes; P20-24: Good Studio; P27: Mix Tape; P29-33: Fam Veld, Kukiat B, Nattika, SR Lee, Madlen, Rosie Parsons, EQ Roy, Dionisvera, Frau Cosmic, MaxPro; P36-37: Donna Hay; P40: Melissa Bell

FAMILY CARE FRIENDS

www.carers.net.nz

FamilyCARE 7

Improve People’s Lives We offer The Bachelor of Social Health & Wellbeing (Disability), The Bachelor of Social Health & Wellbeing (Mental Health and Addictions) and a range of Certificates and Graduate Diplomas

Our Health & Wellbeing certificates are now offered fee free* A Health & Wellbeing certificate will enable you to gain formal recognition for your skills and progress your Health & Wellbeing career. Studying with Open Polytechnic allows you to fit study around your life with flexible study options.

Enrol anytime, and study when it suits *Open Polytechnic Health & Wellbeing certificate fees are covered under the Targeted Trades and Apprentice Fund. Visit our website for full terms and conditions.

NZ Certificate in Health and Wellbeing (Level 3) with strands in Health Assistance and Support Work

NZ Certificate in Health and Wellbeing (Advanced Care and Support) (Level 4)

NZ Certificate in Health and Wellbeing (Social and Community Services) (Level 4)

feedback

your say WE’D LOVE TO HEAR FROM YOU!

Share your thoughts, or ask other readers for advice. Send your comments to centre@carers.net.nz, or post them to PO Box 47-385, Ponsonby 1144.

Pick me up

Thank you for the latest issue of Family Care. I read it on exactly the day I needed to because of all the info about burnout, which was so relevant for me on that day. Keep up the good work. ANGE STANFIELD

Easy recipes

I love your magazine, with so many helpful suggestions and interesting articles. Thank you for sending it to me. After I have read it cover to cover, I pass it on to our local library for others to enjoy. I especially like the easy, affordable recipes you include. ANNE

Not alone

I cared for my parents full time for ten years without help because what was on offer to me as a ‘family carer’ was not what we needed, and I knew no one to call on to use the respite subsidy. My parents both died in January within three days of each other, which was lovely for them – they had been married for 75 years. I enjoyed receiving your magazine and knowing I was not alone. Thank you. JANET PHARE

We're not machines!

This is my first copy of Family Care and I really enjoyed the wellbeing, doing nothing, we’re not machines and purposeful breathing features. Thank you for the great content! I really appreciated the advice.

New ways to pay Cheque books have been withdrawn. A lot of us depended on cheque books to buy our groceries and pay the usual household bills. My daughter taught me to use internet banking, something I was against because I was scared of the unknown. Now I am so pleased because I don’t have to leave the house on cold wet days and make a special trip into town to pay bills. My concern now is focused on elder abuse. With a cheque book we had control of our money, and if a family member wanted some ‘emergency’ money we could help them out but still have control. Without cheque books, many senior citizens will have to rely on family members to pay their bills and access money via internet banking and using cards. In other words, no matter how much we

Taking heart

Awhile ago I arranged for you to send a copy of your magazine to Counties Manukau Grey Power, and now as I’m no longer the one clearing this PO Box, I wonder if I can have copies sent to my home address. I’m not a carer – I’m a caree. Is that a word? I had a stroke 18 months ago, which has left me

trust the family member, they will have total control over our nest eggs. I have seen and heard about how some seniors have been bullied into handing over large sums of money to greedy family. Be careful!

struggling with a few issues – but I really enjoy looking at this magazine. In Issue 45 I found a wonderful Leonard Cohen quote which changed my whole perspective. Whereas I tended to be frustrated by my ‘imperfect offerings’, I now just ‘ring the bells that still can ring' and appreciate the light that comes in through the cracks. CHRISTINE

LINDA T

Thanks Christine, we love that Leonard Cohen verse too. "Ring the bells that still can ring, forget your perfect offering, there is a crack in everything, that's how the light gets in." It goes well with our cover theme of Peace. Take care Christine - we wish you and all Family Care readers lightness and peace this year.

Share your stories and advice with other readers! We’ll send a surprise gift for every letter we publish. Email your letters to info@carers.net.nz or post them to PO Box 47-385, Ponsonby, Auckland 1144.

JAZ www.carers.net.nz

FamilyCARE 9

I am a family carer for another/others I am a 'self carer' managing my own health and disability needs  I care for a child or young person with a disability  I have (or assist someone who has) these conditions or health issues: _______________________________________________________ _______________________________________________________ _______________________________________________________ I work in health and disability  I  work for a community organisation  I share my magazine with others (if so, how many

others see your copy of Family Care: _________ )

I would most like to win these reader gifts:

Making the most of life

I have just completed a questionnaire sent to me by your organisation. I didn’t know of Carers NZ's existence until I received this and have already gone to your website to have a look at your information. I am delighted to know you are there and will read your web pages with interest. Looking after my husband following an accident five and a half years ago has completely changed my life as well as his. Trying to keep a brave face and make the most of life has been our aim. There are a lot of people worse off than us and plenty of people in the cemetery would swap with us. There is always something to be grateful for and I think we do very well at keeping our morale up and supporting each other. However it can be hard and sometimes difficulties arise which seem like the straw which is going to break the camel’s back and overwhelm me. It is so nice to know that there is an organisation out there that cares for carers and is actually doing some research. Thank you for doing this research and giving me the opportunity to tell someone how I feel. Friends may ask how you are, but who wants to hear what’s really going on? It’s easier to say we’re fine than to tell them you are depressed, lonely and exhausted. But I am grateful for the help we have been given over the years and understand how complex and difficult it is to support families in these circumstances. I know these organisations do their best to help where they can and resources are not unlimited. I just wanted to say thank you and look forward to gleaning some helpful advice from your web pages. NICKY

________________________________________________ _________________________________________________ Mailing Address (if different)_________________________

________________________________________________ ____________________________ Post Code___________

Update your details! Every form with an email address will go in the draw for a mystery prize. Email* ___________________________________________ Mobile___________________Phone___________________ * Please provide this information if you would like to receive our bulletins, offers, and other resources.

Email to supportteam@carers.net.nz or post to PO Box 47-385, Ponsonby, Auckland 1144

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I AM GRATEFUL FOR THE HELP WE'VE BEEN GIVEN OVER THE YEARS AND I UNDERSTAND HOW COMPLEX AND DIFFICULT IT IS TO SUPPORT FAMILIES IN THESE CIRCUMSTANCES. www.carers.net.nz

books, music, film

OUR PICKS!

Watch, listen, read, share, learn!

JAMES AND ISEY You may have heard about this uplifting, feel good New Zealand documentary about the week leading up to Isey’s 100th birthday celebrations. James is Isey’s son, who left behind a career in music and acting in Auckland 25 years ago to become a full-time carer. He had returned home to Karetū, near Kawakawa in the Bay of Islands, to look after his father, who had cancer. When his Dad passed away at the turn of the millennium, James stayed on to care for his adorable mother - straight talking, eloquent Isey, who let James know often when he was fussing too much (all the way through the film). Other Isey highlights include sitting in the marlin chair on a fishing boat scolding James for telling the McDonald’s cashier her age, and when she drank bourbon whiskey followed by the same grimace every time. The week leading up to Isey's birthday saw them out on the game fishing boat, in the Waipoua forest visiting Tāne Mahuta (the giant kauri tree), trips into Kawakawa, Kaihoke, and their marae at

Karetū, and seeing the two seas colliding at Cape Reinga. James talks about his spiritual beliefs as a Tōhunga Ahurewa (high priest), and his karakia feature in the first part of the documentary. The highlight of the film was, of course, Isey’s big day. I felt myself smiling and wanting to join in on the singing and dancing. After watching such an intimate insight into their everyday life, you could not help but celebrate alongside them. As Isey's dedicated carer and son, James could not do enough to make the day special, and it was beautiful to watch. There were touches of sadness around the sacrifices he had made and other losses the family had endured, however Isey’s sass and James’ doting demeanour made for heart warming, positive viewing. Highly recommended! Review by Angelique Kasmara, author of the new novel Isobar Precinct. Angelique is Carers NZ's communications manager.

TIKANGA

By Francis and Kaiora Tipene Living a fulfilling life rich with tradition, connection and te ao Māori Following on from their bestseller, Life as a Casketeer, Francis and Kaiora Tipene share how they bring the traditional values of tikanga Māori into day-to-day living, their insights into whānau, mahi and manaakitanga, and how they live a life rich with the concepts of te ao Māori. Known for their warm hearts, grace and humour, the stars of the wildly popular series The Casketeers show how the traditions of tikanga shape their lives juggling five sons, three businesses and a television show - all while sustaining a life filled with joy and connection. Tikanga is available at booksellers nationally, or buy a copy at https://www.harpercollins.co.nz RRP $39.99

1 OF 3 COPIES! GIVEAWAY ENTRY FORM, PAGE 10 www.carers.net.nz

FamilyCARE 11

Peace

Give it a chance.

LITT WAY LE S LOVETO YOU RSEL F

Self-Soothe

Find a favourite childhood book to read – it’s a great way to self-soothe during unpredictable times. Try and find an edition with a particularly lovely cover or illustrations!

AIR PURIFIERS

Furry Fun

Want to improve the air quality in your home? How about getting a plant like a peace lily? They purify the air of chemicals such as benzene and trichloroethylene and are hard to kill!

Watch videos of animals doing funny things. Do you need a reason?

Let it all out

Make some time for a long, uninterrupted cry. Releasing pent up emotions is good for our health, and crying eases stress and releases oxytoxin and endorphins. Take 20 minutes if you can!

You are the sky. Everything else is just the weather. Pema Chodron

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www.carers.net.nz

GET YOUR CRAFT ON

The lovely team at All You Needle are passionate about inspiring people to create and make things for themselves. Based in Kerikeri (but always available online with nationwide deliveries), this NZ business is a treasure trove of all things cool and crafty. It offers a great selection of hipster macramé kits, super stylish knitting projects, unique kids' crafts, relaxing activities, elegant embroidery, and so much more for all tastes and abilities. https://www.allyouneedle.co.nz

To get your craft on we have two All You Needle bundles to give away worth $125 each!

Help if you care for a friend or family member Carers NZ produces many free resources. You can find them at www.carers.net.nz or phone 0800 777 797 to order copies for yourself, or bulk copies for carers in your network. Many carers feel isolated and aren’t sure what help is out there for them. Our resources are designed specially for all carers including those supporting an older person, older carers, and young carers aged under 24.

COOL HEADS

BraveFace is a trio of herbal supplements designed to tackle stress and worry. Try CoolHead Day spray for rapid calming action, HeadRest night drops for a better sleep, or LiveCalm capsules for long-term stress support. Made by a New Zealand owned and developed company, the BraveFace system works for both instant relief and to reduce symptoms over time. HeadRest night drops $45, LiveCalm daily capsules $40, CoolHead day spray $45. Go to https://www.hellobraveface.com to buy online, or available at Farro stores or selected Unichem and Life pharmacies nationwide.

1 of 2 full BraveFace bundles worth $110 each!

Contact Carers NZ if you need advice, have a question, or to request any of our resources. 0800 777 797 centre@carers.net.nz www.carers.net.nz facebook.com/CarersNZ facebook.com/YoungCarersNZ www.carers.net.nz

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Useful things Aids, equipment, fun stuff!

CHEEKY CLEAN TOILET SPRAY Leaving all your landscapes cleaner!

Here’s some Kiwi ingenuity for you! Cheeky Clean Toilet Spray is a fantastic all natural, eco friendly alternative to ocean-polluting wet wipes. Simply spray on your toilet paper for a smooth, effective clean. The spray is made from chamomile, aloe vera, lemon, tea tree, lavender, and natural oils and gums and is neatly packaged in recycled bottles. One bottle holds the equivalent of 400 wet wipes, so you’re getting excellent value for money while saving the earth!

A LIFETIME’S SUPPLY OF CHEEKY CLEAN!

Cheeky Clean - From Concept to Creation to Cleaner Cheeks By Chris Scott I have personally never understood why we use dry toilet paper. Hygiene is always accompanied by moisture - washing the dishes, showering, wiping the bench, mopping the floor – so why have we (in the Western world anyway) settled on using dry toilet paper on our bottoms? It has never made sense to me. And as someone who has suffered on and off with IBS, it’s been a bit of a frustrating battle at times. It was partially due to this that I decided one afternoon in December 2018 to look into options to improve the overall toileting experience. There had to be a middle ground between dry toileting and spending all sorts of money on a bidet. One of the other reasons for getting stuck into this project was our son, who has autism and is yet to master the art of wiping for himself. When helping to wipe other people, it’s a lot easier to use a wet

wipe. And we used wet wipes for a very long time, only to throw them in the bin or shamefully flush them. But wet wipes are horrendous for the environment, even if they aren’t flushed. They go to landfill and most never break down since they are full of microplastics and microfibres. So that was always gnawing at my conscience too. I gave the process a lot of thought and eventually settled on the idea of moistening toilet paper by wetting it. Well, gently misting it in the case of Cheeky Clean. I looked around and found the perfect lab and sniffed hundreds of essential oils. We trialled so many samples, and tweaked them and changed them and then tried more. I wasn’t interested in synthetics, only natural, eco friendly and sustainable ingredients – or nothing. Cheeky Clean isn’t here to add to the problems, we’re here to make things better, easier, smoother. We’re here to clean up the way

we wipe. And finally, we settled on the winner. Lemon, tea tree, aloe vera, chamomile and lavender, all bringing to the party their own health benefits. Together they smelt and felt amazing. Cheeky Clean has helped my family, my friends and plenty of strangers achieve a better way of toileting already. It’s been welcomed by many communities with their own concerns around rectal hygiene and I’m constantly surprised about how many people are contacting me and sharing their stories around how much they needed the spray. It’s clearly something people have been waiting for or unconsciously needing for a while now, and I’m super stoked to have helped facilitate that! There will be more to come as we look into travel bottles and Cheeky Clean for babies, so give us a try and stay posted!

THE ENTRY FORM FOR FAMILY CARE GIVEAWAYS IS ON PAGE 10! 14 FamilyCARE

www.carers.net.nz

RAW STRAWS

Here’s a great alternative to plastic straws! Raw Straws are made from rice flour and tapioca starch, are 100% natural, gluten free, vegan, compostable (completely biodegrading in 90-100 days) and edible. They come in beautiful colour options but are without flavour themselves, so they won’t affect the taste of your drink. And they’ll last for up to an hour in cold drinks! Size, shape and colouring may vary from straw to straw. Raw Straws are made by 100% New Zealand owned and operated company Straw the Line NZ. https://strawtheline.co.nz/

1 OF 5 PACKS CONTAINING 100 STRAWS WORTH $20 EACH!

ACUPRESSURE AT HOME

Shakti Mats are a modern spin on ancient acupressure techniques, which you can do within the comfort of your own home. The mats are made of 100% organic cotton and nontoxic dyes, and the acupressure ‘nails’ are made from recyclable and durable ABS plastic. Each mat contains polyurethane foam (PU). Local craftspeople in India make each Shakti Mat by hand, and Shakti employees in India are supported with a living wage, sick leave, holiday leave, an emergency medical fund, and investment in the education of their children. Learn more and buy your own mat at https://www.shaktimat.co.nz

With over 1600 products, we’re your mobility experts. Wheelchairs to Walkers & Scooters Continence to Cushions Bedroom Furniture to Bathroom Products Home Living to Helpful Gadgets Kitchen Aids to Cooking Utensils

Stores at Browns Bay, Royal Oak and Botany. Or shop at www.ilsnz.org

www.carers.net.nz

FamilyCARE 15

The joys of being

AWAY FROM HOME It's always fun to visit friends and family or see new places. But having the right gear means everything if you have a disability. We asked Independent Living for advice. Feel at ease when travelling or staying with others

After so long cooped up in different versions of lockdowns, the opportunity to explore and stay away from home may feel unfamiliar. For many it is also coupled with the complexities of ensuring where we stay or visit is accessible or safe.

Will I be able to get out of the bathroom? Will my mobility equipment struggle on the terrain? Can I use the facilities easily?

Independent Living understands these issues – they have been assisting those with disabilities and age-related mobility issues since 1981. Here are Independent Living's top picks for making excursions away from home stress-free.

Have the right mobility device Banish the struggle of getting your wheelchair or scooter into a vehicle, airplane or tight space. Hire a portable model! Independent Living has a huge range of hire wheelchairs, scooters and walkers, many of which fold up easily to a compact size. And they can be hired by the week for as little as $15. If you travel frequently, if just to explore your own city, consider investing in a ZestAir portable scooter – it’s light and compact enough for plane travel. And at under $2,500, it’s a great alternative to a walker.

Travel light

There’s no need to lug loads of pill bottles around – invest in easy to open

pill dispensers, and only carry the exact number of medicines you need. By counting them out in advance of travelling, you know you won’t be forgetting any! Anti-Theft Daypacks are small, light and allow you to carry so many things including sipper bottles and novels. They are a safe alternative to a handbag, with the added benefit of a portable charger outlet for mobile devices. You might consider a folding walking stick; these are very light and fold to a small size so are easy to carry around when not required, but assemble in a flash if needed.

Feel safe in the bathroom

Other people’s bathrooms can be a minefield: slippery floors, lack of support surfaces, and facilities simply not designed for easy access. Nonslip floor mats and suction grab rails can help to make a wet space safer, and they are small enough to stow in your suitcase. Folding shower chairs and toilet seat raisers are light and affordable, too. And if weak hands are a concern, add a

tap turner to your bag – perfect for sticky older taps and those annoying plastic handled designs! Independent Living also hires out portable commodes, shower chairs and toilet frames.

Eat and rest in comfort

Don’t be put off eating in front of others. Seat raisers and cushions are discreet, light, and will ease concerns getting in and out, or ensuring you are at the right table height. Lightweight scoop plates and sipper cups come in all shapes, sizes and prices to ensure no embarrassing spills. Independent Living also offers personal hygiene and toileting products. Its assistive technology experts can help to ensure you have the right products for any occasion. Visit Independent Living at one of its Auckland stores in Botany, Browns Bay or Royal Oak, view products at https://www.ilsnz.org or call for free advice to ensure you have everything you need for a relaxing time away from home 0800 625 100.

A real ‘tight five’

The Wallaces’ five week old baby girl, Edin, was in Starship children’s hospital in Auckland with unexplained seizures. Her mother Karen was by her side. Edin’s father Rob was nearby in Ronald McDonald House with her two brothers, Ben, 6, and Ryan, 4. Whatever was going to happen to Edin, the Whangārei family was going to face it together. “Life got flipped upside down very quickly for us,” Rob says. Edin was in the grip of infantile spasms, or catastrophic childhood epilepsy, which is drug resistant and associated with a range of other conditions. Two years later Edin was diagnosed with the rare genetic disorder CDKL5 – a condition only discovered in 2004. To the family's knowledge she was only the second child in New Zealand to be diagnosed with the condition. “It took a long time to get the diagnosis because her blood work got sent off to Cardiff, in Wales,” Karen says. Karen, meanwhile, had been doing her own Google research after spotting a reference to CDKL5 that seemed to fit Edin’s symptoms. “By the time we got the confirmation I had already got my head around it.” While the diagnosis didn’t make a difference to their everyday care for Edin, it was important for understanding her condition. “At the end of the day it’s only for the peace of mind – to find a reason as to why. It’s not a hereditary thing; it’s completely out of the blue,” Rob says. Apart from her seizures, Edin cannot speak or walk. She has gastrointestinal issues and is mostly fed through a tube in her stomach, and has limited use of her hands. Edin needs 24-hour, seven-days-a-week care and the whole family pitches in. The Wallaces’ instinctive reaction to form a tight circle around Edin has been their means of coping and their way of life for 10 years. “I basically have done the nights and Karen has done the days,” Rob says. “Even on the nights that Edin will sleep through, I will wake up at 3am to see why she is so quiet.” Karen says the tag-team approach works. “I am someone who needs my sleep and I can’t function without it. And Rob is a night owl.” Ben and Ryan, now 17 and 15, are an essential part of the team. “The boys have been a great help. They have been extra eyes and ears,” Rob says. “Once we decided we had to take it on as a family unit, we did it.” Edin attends the Blomfield Special School’s satellite class at Morningside Primary School. Aside from that, the family provides all her support. Karen acknowledges that they have been reluctant to hand over Edin’s care to others. “We would be more stressed and lose more sleep if she was with somebody else and we weren’t comfortable,” she says. For 10 years, doctors have been trying to bring Edin’s seizures under control, trying one drug after another. She is now on a medical ketogenic diet, a special high fat, low carbohydrate diet that is showing some success in limiting her seizures.

Edin Wallace has a strong team of supporters behind her. Financially, things have been extremely tough as neither Karen nor Rob is available for full-time employment. Rob, who has been on JobSeeker Support, has come under pressure to find a job – something he says is impossible when he is on nights with Edin. “It’s been 24/7 for 10 years. We have both had to give away our KiwiSavers.” But Rob says their lives changed after an introduction to IHC Family Liaison Jim Callaghan. Jim arranged a meeting with needs assessment agency NorthAble, and as a result the extent of Edin’s needs has been reassessed. The Wallaces have switched to individualised funding through host service Manawanui and now have a navigator to help them access the services they need. Manawanui is an organisation that manages self-directed funding for disability support services. The financial pressure has now eased. Karen is classed as a full-time carer on a Supported Living Payment through Work and Income while she manages Edin’s funding. Rob will be an employee, paid through Edin’s funding package. “It has changed our lives, meeting Jim. It is a shame it didn’t happen 10 years ago,” Rob says. “There are not enough Jims out there.”

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Changing PLACES Truly accessible public bathrooms are few and far between in New Zealand. But more are popping up, thanks to Changing Places, a charity led by campaigner Jenn Hooper. What are Changing Places?

Changing Places came about because some people need more than standard accessible toilets offer in order to 'go'... people with profound and complex disabilities, as well as those with other physical disabilities such as spinal injuries, muscular dystrophy and multiple sclerosis who need extra equipment and space to allow them to use toilets safely and comfortably. The campaign for Changing Places started almost two decades ago in the UK, where there are now more than 1,500 of these bathroom facilities, including within several High Street supermarket chains and motorway service stations. Australia has followed suit and is fast growing its own network, with well over 150 of the accessible bathrooms built already. In fact, Changing Places now feature as part of the building regulations in both Australia and the UK.

Why are these facilities so important?

Changing Places addresses the needs of those unable to selftransfer onto a standard accessible toilet. 18 FamilyCARE

Until now these people, along with their caregivers and families, have been excluded in our society. They have either had to remain close to home or even undergone invasive surgical procedures, just because their most basic hygiene needs weren’t being met. Changing Places also takes care of the carer – because we’re important too, right?! “As a family, we love to travel, but to travel with our son we need to know how and where we can access a toilet. As a family carer my back and general physical wellbeing is essential to enable my son to lead a good life. Crouching down on floors to change a 16 year old, highly dependent on a wheelchair, is not only unsafe and unhygienic, but highly undignified for any human being.” Kimberly Graham, Grab Your Wheels, Let’s Travel

Great, but what about NZ?

In 2018, Hamilton based Jenn Hooper (mother to a disabled child with complex needs) established Changing Places NZ, a registered charity. She secured the trademark of the internationally recognised Changing Places to ensure functional standards remain high and can't be compromised. Prior to this, Jenn invested four years in research locally and worldwide, ironing out shortcomings the UK and Australia encountered during the implementation stages of Changing Places, and applying learnings to plans for New Zealand. Once confident in her design, and with the cooperation of the www.carers.net.nz

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Hamilton City Council, Hamilton Gardens opened New Zealand’s first Changing Places bathroom in April 2018. Hamilton Gardens Changing Places NZ facilities provide specialised equipment, including: • a ceiling/wall mounted track hoist • a height adjustable adult-sized changing table • a shower over the change table • a centrally placed height adjustable toilet with room either side • a screen or curtain for privacy • a height adjustable hand basin • a hygiene and sharps waste bin • adequate space for the disabled person and at least two assistants or family carers • a secure access system

Secure access system

Each Changing Places bathroom contains valuable assets which need protecting from misuse, so it is essential that these bathrooms remain locked. Jenn says the UK experienced many problems at the beginning by allowing facilities to be left open to the public, ranging from vandalism to the homeless moving in. Changing Places ensured secure access for NZ facilities utilising technology that didn’t exist when the UK first started building their rooms. When signed up as a registered member, NZ users are issued with an electronic tag which allows access to any Changing Places facility nationwide. The electronic tag comes with a simple pullout tag on a retractable lanyard. If lost, the tag can easily be deactivated and reissued. Lifetime membership requires a small one-off fee, which is fully funded for the majority of users - Changing Places NZ has secured agreements to process funding through ACC, Individualised Funding, Work & Income, and the Cerebral Palsy Society, with other funders likely to come aboard in the future. The UK charity is hoping to establish the same security system in its own future builds. This will allow everyone to travel without the need to carry a pile of keys, locate where a key is held, or have to front up to a camera to be judged by a stranger in order to gain access. “These rooms aren’t about excluding those that don’t need them. They’re about including those that do.” Jenn Hooper – Founder, Changing Places NZ

Are Changing Places available nationally?

New Zealand councils have generally been very receptive to the need, once they know it exists. They have also welcomed the expert advice and support provided by Changing Places NZ. The charity has worked hard to begin educating around the need. A 2018 petition by Jenn Hooper recently resulted in a positive Government response, with agreement to support a nationwide network of these bathrooms. "We now wait to see what the framework for that looks like, but in the meantime it’s important for all of us to keep sharing www.carers.net.nz

awareness of the need – and the solution – to our councils and District Health Boards," Jenn says.

How many Changing Places are there now?

There are three Changing Places bathroom facilities, with four due for construction and others in different stages of planning. All Changing Places NZ bathrooms will continue to boast fabulous themed artwork. Jenn’s daughter Charley, who inspired her mother to become passionate about disability inclusion, will feature in the artwork of every room in some way.

How can I help?

Changing Places NZ needs help to make it grow. Share the website and Facebook pages with your networks and on social media. Talk about Changing Places to your special schools, respite homes, doctors and friends. Place a Changing Places NZ bumper sticker on your car, laptop or wheelchair. You can help to ensure these bathrooms are available across the country by approaching your local council. Keep an eye out for public toilet revamps or build plans in your area and suggest they include a Changing Places bathroom. Perhaps most importantly, if you or someone you know need these rooms, join Changing Places as a member. "The rooms were built for those that need them. Help identify who they are and together let's get these rooms well used," Jenn says. Details about the bathrooms, memberships, and how to donate can be found at https://ChangingPlaces.org.nz FamilyCARE 19

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PEACE Most of us love the idea of peace and its association with the simple things: living a calm and contented life, with fulfilling relationships at home and work. But these can be elusive goals, especially at times of stress. How do we bring more peace into our daily lives? By Angelique Kasmara

What is peace?

In its fullest sense, peace is about living harmoniously with yourself and others, of practicing self-love (including our quirks and flaws!) and being accepting of other people’s differences. Easier said than done, of course. Many of us live in chaotic households. Or maybe we present as outwardly calm, whilst inwardly going through a huge amount of pain. Maybe we live a mostly trouble-free life, but differences in opinions between friends and family really get to us! If you’ve been the victim of a scam or home invasion, peace may come in the form of having tight security within your four walls. And sadly, there are many enduring an unsafe situation within their own homes, whose peace can only come with escape. Whatever your individual situation, how do you do what is within your power to have a more peaceful life? We hope our ideas inspire reflection and plans to be more at peace in the months ahead. And remember, even small steps can bring great peace.

He iti hoki te mokoroa nāna i kakati te kahikatea While the mokoroa (grub) is small, it cuts through the kahikatea

DO YOUR LITTLE BIT OF GOOD WHERE YOU ARE; IT’S THOSE LITTLE BITS OF GOOD PUT TOGETHER THAT OVERWHELM THE WORLD. Desmond Tutu

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Power in the small things

Self-help guides will tell you that it’s the tiny moments which make all the difference. Watching a bird take a bath in a puddle, enjoying a freshly brewed pot of tea, finding sprouts bursting out of the seeds you’ve planted. It’s sound advice and a good reminder to take pause. However, how does any of this help if it’s a dramatic change which is needed, such as leaving a job or a relationship that isn’t working? If you’re feeling that your options are limited and that you’re simply stuck, think of the small things as tiny acts of courage. The accumulation of small, regular acts that build up our sense of self-worth make a difference. Micro-choices we are able to make on a daily basis will eventually open up a way forward. Following are a few little suggestions you can make to help positive effects accumulate. Even five minutes a day builds up over a week!

Play

If it’s rainy outside, does your usual response involve curling up inside? Fair enough! But every now and then, try putting on your gumboots and raincoat and go for a walk in your local park. The difference can be truly surprising. It’s a good reminder of how adding one ingredient to the mix can quickly transform an entire landscape. Or try out a new look; play around with hairstyles, makeup and accessories. Take selfies. Delete the selfies if you’re not keen on what you see. Try again!

Be kind to yourself

Start each day with three things you’re thankful for. Do something nice for yourself every day. Give yourself a compliment, soak in a warm bath, take yourself out for a coffee. Make a list of mini goals. These may look like: Take a shower. Brush your hair. Get fresh air. Keep a ‘done’ list alongside your ‘to do’ list, to keep yourself positive about what you’ve already achieved. Connect: get in touch with a friend once a week, just because. It can be as simple as a quick text to say you’re thinking of them. Tidy up in bite-sized bursts. Set aside some time to transform one corner only of your home. Donate or bin anything unwanted within this corner. Give the rest a good dusting, and try a few different arrangements.

Be present

Guided meditations can be especially helpful when you’re finding it hard to still your mind. Try Anna Filliol’s 5 minute meditations: search for Anna Filliol at https://www.carers. net.nz Slow down to savour every bite of what you’re eating. Eat one meal in silence every day without any other distractions, giving what’s on your plate your full attention. Being able to truly listen is a gift. The Art of Listening podcast with psychotherapist Chris Mills explains just how complex being able to really listen is: https://pod. link/1567190358/ Exercise! Every half hour, pause and do a couple of star jumps or a quick stretch. Search for Strength for Life to find Wayne Halkyard's 15 minute strength-building programme at https://www.carers.net.nz Is there something you’ve always wanted to learn but haven’t found the time or money to do try? There are heaps of free online tutorials on YouTube that you can dip in and out of when you get a moment. Or check your local school or community centre for courses they may be running. Sing! Singing releases ‘happy’ chemicals such as endorphins, serotonin and dopamine. It also counts as aerobic activity, as you’re increasing your lung capacity, engaging surrounding muscles, and taking more oxygen into your blood, leading to better circulation. And it lets you express yourself! If you’re having a bad day, there’s going to be a song out there which will tap into everything you’re feeling and help you let it all out!

TENSION IS WHO YOU THINK YOU SHOULD BE. RELAXATION IS WHO YOU ARE. Chinese proverb

If you’re struggling, remember that there are therapists out there to talk to. If the cost is prohibitive, there are free options you can explore online. See our suggestions on page 38. Here are a few other starting points: https://mentalhealth.org.nz https://www.justathought.co.nz https://www.instagram.com/thisisyolandarenteria

www.carers.net.nz

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feature Inner peace

We often think of peace and tranquility as that thing you’ll do sometime in the future: the idyllic holiday in the sun or a calming retreat. These are fantastic, of course, but finding a strong inner core which will help anchor you through rough times is what really helps when life proves challenging. Achieving inner peace involves throwing off thoughts and behaviours that keep you from feeling that sense of quiet. The specifics vary greatly from individual to individual, but there are a few obstacles that most of us face. Let’s have a look at these. I will be happy when I get this item. A new acquisition will only give you a momentary boost. There’s nothing wrong with treating ourselves, and it’s exciting to get that lift, but do recognise it as nothing more.

My true emotions will reveal my weaknesses. We often hide our true feelings, because we’re worried these will give others ammunition. And no wonder - if you’ve ever been bullied, manipulated or made to look small, hiding our vulnerabilities is basic self-preservation. It can be really hard to see that showing our emotions can be a strength, and a means to authentically connect with others. I need to achieve. In a culture which celebrates go-getters, allow yourself to be ordinary and know that this is absolutely fine! I’m ashamed of my past. We all have regrets and skeletons in the closet. Accept that these memories are part of you, learn to find peace in their presence, and view them as battle scars which have made you a better person today. Embrace your present.

WHEN THINGS CHANGE INSIDE YOU, THINGS CHANGE AROUND YOU. Unknown

Soothing Scavenger Hunt

Write down a few things which are calming for you, that can be found in your neighbourhood or a place you like to visit. Turn this list into a soothing scavenger hunt. It’s a good way to introduce variety into your daily walk or outings! Some ideas: Pleasing leaf shapes A tiny library The scent of freshly cut grass, flower aromas, a handful of herbs A smooth stone A quirky letterbox Bird song

I can hear you making small holes in the silence rain. Hone Tuwhare

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What peace isn't …

Peace is not an absence of conflict. Often we may withdraw from a potentially difficult situation in order to keep the peace. This may be the best solution under some circumstances, such as arguing with strangers on the internet. However, it shouldn’t come at the expense of burying your feelings deep within or turning down opportunities. For example, being taught to avoid talking about politics and religion may have led to a lack of understanding of politics and religion. What we should have been taught was how to have a civil conversation about a difficult topic. How best to deal with conflict? Here are a few ideas to explore. Start with yourself - the best version of yourself will be better equipped to deal with difficult topics, people, and situations. What can you do for you?  Establish healthy boundaries in your professional and personal life  Spend more time doing things you love  Talk to yourself the way that you would to a good friend Can’t avoid that difficult conversation? If a difficult conversation is unavoidable, it helps to gather your own thoughts first. Ask yourself a few questions and write down your answers. This helps give your feelings shape and form, and you’ll feel calmer.

The questions may look like: What is the worst part of this? How does it make me feel? Is it better to be right, or to keep the peace? What am I trying to achieve? What scares me? How will this affect me in the long term? What would be the best possible outcome? What advice would I give others in this situation? It’s best to plan these conversations in advance, but try not to collect and hold onto resentful feelings for too long either. Whenever possible, discuss issues as they arise. Mutually agree on a time and place, in a space which is as neutral as possible.

Pointers to move forward, be clear and use  Have everyone at around the same specific examples. Don’t generalise eye level. If this is difficult due to or use words like ‘always’ and varying heights, keep everyone a ‘never’. few metres apart.  No interrupting.  Be as matter-of-fact as possible.  Make sure you understand the  Avoid attacks, cursing, and other person before responding. threats. If this happens, try placing Repeat what they say back to something like a bell that everyone them: “is this what you’re saying?” can ring to signal to stop. or “am I understanding this  In describing your concerns and clearly?”. what you’d like to happen in order

 Approach the conversation with openness and an interest in problem solving, rather than needing to be right.  Keep to the topic at hand.  Take responsibility for feeling the way you do. For example, use “I” statements such as, “I feel...” instead of “You make me...”  Drop your assumptions.

Ultimately, keep in mind that you can’t control the reactions of others. If preparation doesn’t help, consider other options, such as bringing in a neutral party.

PENA KA HAERE TONU, A TEW AA KA TAEA, KA MAU. YOU WILL GET THERE IF YOU JUST KEEP GOING. Dame Whina Cooper

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feature Choose peace

The International Day of Peace is celebrated as “a day devoted to strengthening the ideals of peace, both within and among all nations and peoples”, as described by the United Nations. It only takes flicking on world news to see that much of the world is in conflict. Living in New Zealand, we are already fortunate. But news channels and social media can often make us feel helpless about many things beyond our control. If you’re passionate about a human or animal rights or environmental issue, and have the time and energy to commit, finding a local or online group may help you give these feelings a productive outlet. Do remember that your own self-care comes first. Pick your battles and step away if things get overwhelming. Switching off may be the best thing you can do for yourself right now.

Peace of Mind

You can’t overestimate the importance that feeling safe in your home, forward planning and preparing for emergencies can bring. Emergency Planning Tools Having an emergency plan is important if something happens to you. Although you may be able to contact someone who is willing to help in an emergency, we know that this isn’t always possible. Having a plan in place can stop an emergency turning into a crisis, and can give peace of mind for you and anyone you support. Carers NZ has developed a suite of tools to help you in an emergency. Download our online information pack which includes our Emergency Planning Tools at https://carers.net.nz Money Talk Financial planning is also important for peace of mind. Many people are conscious about where their spending goes, but don’t have many of the advantages that may help them stretch their dollar further. Also, there should be no shame if you are simply ‘not good with money’. There is help available. You'll find free helpful advice at https:// sorted.org.nz

PEACE CANNOT BE KEPT BY FORCE. IT CAN ONLY BE ACHIEVED BY UNDERSTANDING. Albert Einstein

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1 2

be in the

garden meditate

sleep

listen to music

swim

4 read a book

cuppa tea

5 6

IT WILL LOOK LIKE THIS

FOLD IT

2 8

5 6 3

2 FOLD DIAGONALLY

FOLD OTHER CORNER

4 UNFOLD IT - PICTURE SIDE IS DOWN

5 FOLD THE CORNERS SO THE POINTS MEET

6 FLIP IT OVER

cUT oUT & FoLD YoUr weLLBeINg ForTUNe TeLLer Cut and fold your wellbeing ‘fortune teller’ and keep it handy. When you have a moment to yourself, pick a number and enjoy the suggested activity for some time out! www.she-cares.org

5 6

IT WILL LOOK LIKE THIS

UNFOLD IT

3 4

7 8

CUT ALONG THE DOTTED LINE

7 8

hot bath

FOLD IT AGAIN THE OTHER WAY

7 FOLD THE CORNERS SO THE POINTS MEET

OPEN IT OUT & PICK A NUMBER

CAN'T GET TO THE SUPERMARKET? WE CAN HELP. Order your groceries and have them delivered by the Student Volunteer Army. Call 0800 005 902 or go to shop.sva.org.nz.

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NEW!

for care partners

Alzheimers NZ has a new program for care partners! By Dr Kathy Peri, Director of Alzheimers NZ’s Dementia Learning Centre. There is mounting evidence1 that dementia care and support in New Zealand needs greater investment, both in the workforce and in those caring for or living with someone who has dementia. Caring for someone living with dementia can be both very rewarding and extremely stressful, mentally and physically. The carer can become very emotionally involved, which is great and means they take their role very seriously, but that commitment and dedication can also mean they devote more time and energy to the person they are supporting than to themselves. And over the last two years many carers have been feeling more isolated due to COVID-19 and the associated lockdowns. That’s why it is so very important for care partners to have access to good support services and resources. And that’s why the Dementia Learning Centre saw it as a priority to develop a new online Caring for the Carers program that aims to help care partners take better care of themselves so they can enjoy more reward and less stress.

The program was co-designed with carers and people living with dementia around New Zealand, so it’s very dementia friendly and user-friendly. It’s a first for the New Zealand dementia community and offers a range of tips, resources and advice around mental and physical wellbeing, rest and relaxation, and diet and lifestyle to ensure carers can better deal with the stresses of their role. It includes three specific modules: looking after yourself, staying connected to the community, and advice for caring for someone who has dementia. The modules are self-directed, easy to navigate, and have links to external resources carers can refer to for more information. These are really helpful when those stressful times occur. At those times, carers can go to our online program and access some mindfulness activities, for example, or learn some relaxing breathing exercises. Since the program’s launch in August 2021 we have been capturing feedback from users and are delighted to hear it’s already making a difference: “Love the carers online program, it is so easy to navigate”, said one, while several stated they feel supported now they have this program to refer back to, and to share with others. Health professionals working with carers and the people with dementia they support have recommended the program to help reduce carer stress levels during the pandemic.

“I FEEL SUPPORTED NOW THAT I HAVE THIS PROGRAM.”

Access to the carer support program can be found at the Alzheimers NZ website via the Dementia Learning Centre page. https://alzheimers.org.nz/news/introducing-the-caring-forthe-carers-programme 1 This evidence can be found in recent reports Our Lives Matter and Getting Our Heads Around Dementia in New Zealand, The Dementia Declaration and the recently relaunched Dementia Action Plan 2020-2025.

www.carers.net.nz

FamilyCARE 27

Are you coping with bladder and bowel issues, or supporting someone who is? We’re here for you. Our helpline is available Monday to Friday 0800 650 659 For more information and videos, go to continence.org.nz

We are delighted to have two specialist continence nurses on our team, Lisa Smith and Louise Mills, who are ready to answer your calls on our helpline, from 9am to 5pm weekdays. Both Lisa and Louise are vastly experienced, with a wealth of knowledge and expertise. They love to help whānau and carers and can provide support and advice for adults and children. Whether you are caring for someone with incontinence in these trying times, or your own symptoms have been worsened by stress and anxiety, they can help. Continence issues can easily slip to the bottom of the heap when you are dealing with so many other worries.

Please give our friendly nurses a call. They can help with advice about accessing product, steps you can take from home to help your symptoms and how you can get further support if you need it. Call us on 0800 650 659. You can also email info@continence.org.nz with any questions you may have. We look forward to hearing from you. You don’t have to do this alone.

Continence NZ is proudly supported by:

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Pick Your Own Picking your own fruit, veg and flowers can be one of the loveliest activities for a relaxing day off. It’s fun anytime of year depending on what’s in season. More growers are allowing the public to 'pick their own'. Bring your besties, a picnic lunch, slow down to the rhythms of the day, and enjoy. By Angelique Kasmara www.carers.net.nz

We’ve compiled a list of pick your own places up and down the country. If you can’t see anything near you or where you’re going to be visiting, further options are just a Google search away. Or, visit your local information centre – they often have maps of fun things to do locally including growers who invite visitors to tour their operations and pick their own produce, flowers, or fruit. There were too many amazing places to include everyone in this list, and besides, we'll enjoy sharing your recommendations! There are contact details for all of the places we’ve listed. It’s a good idea to call or email first as opening times can vary.

FamilyCARE 29

SOME THINGS TO ASK

Prices per kilogram EFTPOS / Cash Seasonal availability Opening hours / if booking is required Accessibility (toilets, parking) Can you bring your own container(s)?

WHAT TO BRING

Hat, gloves, sunblock, drink bottle

NORTHLAND

Blue River Orchard

PYO Blueberries 5 Koropewa Rd, Kerikeri Real fruit ice creams, coffee, cake and smoothies. They also take their berries to weekly farmers’ markets at Kerikeri and Paihia over summer. https://www.facebook.com/ BlueRiverOrchard blueriverorchard@gmail.com 027 725 8199

RODNEY

Gala Berry

PYO Strawberries, Blueberries 256 Omaha Flats Road, Warkworth Family owned and operated, real fruit ice cream. Committed to using a minimal amount of horticultural intervention.

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https://www.facebook.com/ matakanaberryco https://www.matakanaberryco.co.nz office@galaberry.co.nz

Slow Blooms

PYO Flowers, Herbs 17 Sharp Road, Matakana Rows of glorious blooms and healing herbs, grown according to permaculture principles. Slow Blooms also run tours and workshops, and they’re right next to award-winning Charlie's Gelato! https://www.instagram.com/ slowbloomsnz https://www.slowblooms.com 021 202 7664

AUCKLAND Sweet Red

PYO Strawberries 61 Bradly Road, Helensville Third generation family business which has been going since 1974. Their farm shop offers real fruit strawberry ice cream, smoothies, milkshakes, juices and their family area comes complete with vintage tractors for the kids to play on. https://www.instagram.com/explore/ locations/247780551 https://sweetred.co.nz maree@sharenko.co.nz

Windmill Orchards

PYO Apples, Peaches, Nectarines, Pears 294 Coatesville Highway, Coatesville Freshly squeezed apple juice from their own just-picked apples. Garden fresh vegetables, organic whole foods, artisan jams, pickles, mustards, honey, specialty breads and many other products are available to purchase. https://www.windmillorchard.co.nz info@windmillorchards.co.nz 09 415 9497

Clevedon Strawberries

PYO Strawberries 291 Monument Road, Clevedon 217 Alfriston-Ardmore Road, Ardmore A family business with a pick your own service at both sites. Fresh fruit ice cream, coffee, and artisan vinegars, jams, spreads and glazes available to purchase. https://www.instagram.com/ clevedonstrawberries https://www.clevedonstrawberries. co.nz clevedonstrawberries@gmail.com 021 0256 9037

www.carers.net.nz

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Young’s Tomatoes

PYO Tomatoes 75 Pukaki Road, Mangere Pick your own beefsteak tomatoes! Other produce available to purchase: pumpkins, buttercups, watermelon, and corn. https://www.facebook.com/ youngstomatoes yoaiky@hotmail.com 09 275 7323

Phil Greig Strawberry Gardens

PYO Strawberries 464 State Highway 16, Kumeu Real fruit ice cream and frozen yoghurt, handcrafted gelato, fresh fruit smoothies, coffee and waffles. https://www. philgreigstrawberrygardens.co.nz office@strawberrynz.co.nz 09 412 7329

Zaberri

PYO Strawberries, Raspberries, Blackberries 340 Riverhead Road, Riverhead Real fruit ice cream and gardens. There are outdoor activities for the whole family: Inflatable Obstacle Course, Wipe Out and family friendly games area. https://www.zaberri.co.nz info@zaberri.co.nz 09 412 8933

Zaknich Farms

PYO Strawberries 125 Waitakere Road, Waitakere Zaknich Farms has specialised in growing only strawberries for over 40 years, so they know their stuff. https://www.facebook.com/ ZakberryStrawberries info@zakberry.co.nz

Waikato

Lavender Backyard

PYO Lavender, Blueberries 398 Marshmeadow Road, RD6, Hamilton Lavender and blueberries amidst the lush surrounds of Lavender Backyard Garden. They also distill their own essential oils and create natural aromatherapy and skin care items. https://www.lavenderbackyard.co.nz info@lavenderbackyard.co.nz 027 612 8888

Blueberry Country

PYO Blueberries Ohaupo Orchard: 397 Jary Rd, Ohaupo Ngatea Orchard: 229 Central Rd, Ngatea Otautau Orchard: 513 OtautauDrummond Rd New Zealand’s largest blueberry orchard! Three locations: two in the North Island, one in the South Island. https://blueberry.co.nz Ohaupo 07 823 6923 Ngatea 07 867 7552 Otautau 03 973 2339 / 0274 311 998

largest. Orchard shop & café, with huge decks overlooking the orchard. https://monavaleblueberries.co.nz 0800 423 774 / 07 834 3501

Ye Olde Berry Farm

PYO Strawberries, Raspberries, Blueberries 479 Tauwhare Rd, Matangi Fresh berry ice cream (including cherry and peach). https://oldeberryfarm.co.nz 07 829 5489

Monavale Blueberries

PYO Blueberries 178 Turkington Road, Cambridge Monavale Blueberries has BioGro New Zealand organic status. The first substantially sized orchard in New Zealand to grow blueberries organically, it remains the

Bells Berries

PYO Strawberries Corner of Mill and Hamlin Roads, Takanini Bells Berries use symbiotic planting, bio bugs, and natural fertilisers. Their packaging is made from sustainably sourced sugar cane. Real fruit ice cream available for purchase. https://www.bellsberries.co.nz/ https://www.facebook.com/BellsBerries bellsstrawberry@gmail.com 027 443 6612

www.carers.net.nz

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BAY OF PLENTY

Julians Berry Farm and Café

PYO Blackberries, Boysenberries, Raspberries, Strawberries, Blueberries, Ranui Berries, Kotataberries 12 Huna Rd, Whakatane Real fruit ice cream, café, animal farm, playground, mini-golf course, beach volleyball court, basketball half court. www.juliansberryfarm.co.nz info@juliansberryfarm.co.nz 07 308 4253 or text 027 208 4284 / 027 208 4251

Redwood Lane Blueberries

PYO Blueberries 17 Redwood Lane, Tauranga Organically grown. Real fruit ice cream, Shirley’s homemade soaps, shampoo and conditioner bars. https://surelygoodness.co.nz https://www.facebook.com/ RedwoodLaneBlueberries george@marriott.co.nz Ph 07 543 3511

NZ PICK YOUR OWN CALENDAR DECEMBER Raspberries, Strawberries, Cherries JANUARY Lavender, Apples, Blueberries, Melons, Raspberries, Strawberries, Sweetcorn FEBRUARY Apples, Blueberries, Melons, Sweetcorn MARCH Tomatoes, Apples, Blueberries, Grapefruit, Lemons, Melons, Raspberries, Sweetcorn APRIL Apples, Grapefruit, Lemons, Melons, Oranges, Raspberries, Sweetcorn MAY Apples, Grapefruit, Lemons, Mandarins, Oranges, Raspberries JUNE Apples, Mandarins, Oranges, Raspberries

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Iona Boysenberry Orchard

PYO Boysenberries 4 Bell Road (Cnr Bell Rd & SH2), Papamoa Delicious boysenberries, fruit and vegetable store. https://www.facebook.com/ IonaBoysenberryOrchard ionaberry@xtra.co.nz 07 542 1405

HAWKES BAY

Ruby Glen Orchard

PYO Raspberries, Blackberries, Tayberries, Boysenberries 92 Powdrell Rd, Meeanee, Napier Berries for picking. They also sell chestnuts, figs, walnuts and feijoas when in season. https://rubyglen.co.nz https://www.facebook.com/ RubyGlenOrchard rubyglen@xtra.co.nz 06 844 5608

The Strawberry Patch

PYO Strawberries 96 Havelock Rd, Havelock North Real fruit ice creams and smoothies, local

epicurean products available to buy. https://strawberrypatch.co.nz 06 877 1350

CAPITAL AND COAST Penray Gardens

PYO Strawberries, Tomatoes, Chillies, Apples, Lemons, Limes, Grapefruit 1199 State Highway One, Otaki Gourmet sauces, relishes, and dressings made on site. Holiday and special occasion gift boxes and baskets, fresh fruit, vegetables and eggs. Picnic area, gift shop. https://www.facebook.com/PenrayGardens penray@xtra.co.nz 06 364 5302

Bluebank Blueberry & Emu Farm

PYO Blueberries 1301 Akatarawa Valley, RD2, Upper Hutt Emus and geese to look at! Available to purchase from their shop: real fruit ice cream, blueberry fudge and ice blocks, arts and crafts, and emu oil products. https://www.bluebank.co.nz

Iona Boysenberry Orchard PYO Boysenberries 4 Bell Road (Cnr Bell Road & State Highway 2), Papamoa Delicious boysenberries, fruit and vegetable store. https://www.facebook.com/ IonaBoysenberryOrchard/ ionaberry@xtra.co.nz 07 542 1405

Hawkes Bay

Ruby Glen Orchard PYO Raspberries, Blackberries, Tayberries, Boysenberries 92 Powdrell Road, Meeanee, Napier Berries for picking. They also sell chestnuts, figs, walnuts and feijoas (when in season). www.carers.net.nz

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https://www.facebook.com/ Bluebank-Blueberry-Emu-Farm info@bluebank.co.nz 04 526 9540

Otago

Hobbs Family Orchard

PYO Raspberries, Boysenberries, Strawberries, Karakaberries 108 Appleby Highway, Appleby Real fruit ice cream, coffee. https://berryfields.co.nz https://www.facebook.com/ berrylandsfarm berrylands@conning.co.nz 021 983 391 / 022 544 9604

PYO Apricots, Peaches, Nectarines 161 Teviot Road, Hercules Flat Teviot Family owned and operated orchard and fruit stall which grows and sells cherries, apricots, nectarines, peaches, plums, pears and apples. https://www.facebook.com/ hobbsfamilyorchard https://www.hobbsorchard.co.nz sandralex@xtra.co.nz 03 446 8585

CHRISTCHURCH

Cheeki Cherries

NELSON

Berrylands

Blueberry Bliss

PYO Blueberries 475 Robinsons Road, Broadfield Tranquil country setting. Family owned and operated spray-free orchard that has been in the Babe family since the early 1990s. https://www.facebook.com/ Blueberrybliss https://blueberrybliss.co.nz wendy@blueberrybliss.co.nz 03 325 2232

Pataka Berries

PYO Raspberries 768 Marshlands Road, Ouruhia, Christchurch Locally owned and family run farm. Real fruit ice cream, free range eggs, full range of frozen berries also available to purchase. https://www.facebook.com/ patakaberries https://www.patakaberries.co.nz patakaberries@xtra.co.nz 03 323 7896

PYO Cherries 216 Ripponvale Road, Cromwell, Central Otago Cheeki has 22 varieties of white and dark cherries for pick your own. Also available for purchase are apricots, peaches, nectarines, raspberries, local preserves and real fruit ice creams. Picnic area and kids play area. https://www.facebook.com/ Cheeki-Cherries https://cheekicherries.co.nz martinmilne@xtra.co.nz

Monte Christo

PYO Raspberries 100 Springvale Road, Clyde, Central Otago Spray-free berries. Also available for purchase at the café are real fruit

ice creams, berry fruit desserts, coffee and other goodies. Gardens, play area with mini-golf, puzzle mats, giant board games, a train for the kids and even a ballroom. https://www.facebook.com/ montechristoraspberrycafe https://www.montechristo.co.nz gg.ec.blanchard@gmail.com 03 449 2268 / 027 427 7657

DON'T BE AFRAID TO GO OUT ON A LIMB. IT'S WHERE ALL THE FRUIT IS. Shirley MacLaine

Southberry

PYO Raspberries, Boysenberries, Blackberries, Tayberries, Ranui Berries, Gooseberries, Blackcurrants, Redcurrants 56 Tinwald Westerfield Mayfield Road, RD1, Ashburton An incredible range of berries! https://www.southberry.co.nz info@southberry.co.nz 03 308 1338

www.carers.net.nz

FamilyCARE 33

BITE SIZED BREAKS FOR WELLBEING Start with 1 minute then try 5, and before you know it you might plan for a day, a week, or longer. Try a bite-sized break! Find a break that suits your mood just follow the link and click on the Take A Break button!

Respite, Time Out, Whatever You Call It - Give Yourself A Break! Take 1 Minute Take 5 is a fun feature at Carers NZ's website - there are options galore. Having some time out can benefit our health and wellbeing. It can encourage independence, build self-esteem, and provide a broader range of social interactions. Interesting breaks and activities can be enjoyed together or just watched on your own, when it's not so easy to get out! https://carers.net.nz/respite-wellbeing

All of Carers NZ’s services, events, and information are free for New Zealand’s family, whānau and aiga carers. Please help to keep our support free by considering a donation – see page 4. Thanks for helping! 34 FamilyCARE

www.carers.net.nz

Firmer ground for David David Simpson had the ground cut from beneath him when his Kaiapoi home was destroyed in the first Christchurch quake. Then the ground shifted again. Just over two years ago David’s life started to unravel. He split up with his partner of 17 years, and in early 2020 he lost his job and his driver’s licence after an accident in his truck. Without the stability and support of a partner and a job, David found himself struggling to manage everyday life. A Christchurch community worker contacted IHC Family Liaison Sheridan Myall and asked her to get involved. Sheridan says the huge life changes had severely affected David’s independence, his participation in the community, and his health. Truck driving had been David’s life for more than 30 years. He had started out at a rental vehicle company, where he got his truck licence, then moved on after 18 years to driving a truck for a recycling firm for another 14 years. “I have been a workaholic – worked seven days a week,” David says. But without the job and now living alone, David became very isolated. He could no longer drive to get his groceries, topping up his phone was in the too hard basket, and lockdowns made everything much worse. He has no contact with his family. “It’s hard to live on your own,” he says. He has only the TV and the radio for company. “At the moment I watch the news and what’s going on with Delta and that. I do a short walk. Whatever happens, happens. At the moment I just go day by day – just get on with it, take it as it comes.” For more than a year, Sheridan has worked with the community worker to help David get his life back on track. Believing David needed more assistance, they approached LifeLinks, the local Needs Assessment Service Coordination organisation, for an assessment and David, 58, has been diagnosed with an intellectual disability. David had slipped through the support nets in the health and education systems, but now has a diagnosis that entitles him to the support he needs.

David, 58, says he is happy to share his story to help anyone who might be in a similar situation. He now receives the support he needs after being diagnosed with an intellectual disability.

David Simpson, with IHC Family Liaison Sheridan Myall, is getting his life back on track. That includes five hours a week of help with housework and cooking, and another five hours of supported living covering budgeting and paying bills. LifeLinks is also keen to get David help with technology and to reconnect him with his community. David says he is happy to share his story to help anyone who might be in a similar situation. He says Sheridan is great. “She’s my first port of call if anything goes wrong.” And his advice to anyone who needs help? “Take whatever opportunities come to you. Take them with arms open.”

One Pan Perfect

Donna Hay returns with her new, gorgeously luxe hardcover cookbook One Pan Perfect to make life simple, easy and delicious. 120 recipes for no-fuss deliciousness which only need one pot, pan, tray or bowl. Scan the QR Codes on your phone to access 'watch and learn' videos!

PAN KALE AND FETA QUICHE

This could be the easiest quiche you’ll ever make! Cook the pastry on the paper it’s rolled on and fill with delicious supergreens and cheese. 1¾ cups (210g) plain (all-purpose) or wholemeal (whole-wheat) spelt flour, plus extra for dusting ⅓ cup (25g) finely grated parmesan ½ cup (140g) plain thick yoghurt ⅓ cup (80ml) extra virgin olive oil QUICHE FILLING 5½ cups (190g) firmly packed shredded kale leaves 1½ cups (360g) fresh ricotta 8 eggs ½ cup (125ml) milk ½ cup (40g) finely grated parmesan ½ cup (26g) chopped flat-leaf (Italian) parsley leaves ¼ cup (12g) chopped dill leaves Sea salt and cracked black pepper 150g feta, broken into large chunks Preheat oven to 180°C (350°F). To make the pastry, place the flour, parmesan, yoghurt and oil into a bowl and mix to combine. Roll the dough out between two sheets of non-stick baking paper until 2–3 mm (1/16 –⅛ inch) thick. Loosen the pastry on the paper so it’s not stuck to it, then discard the top sheet. Place the pastry and paper into a deep 22cm (8½ inch) oven proof frying pan, allowing the paper to overhang the pan. Bake for 15 minutes or until lightly golden. While the pastry is cooking, make the filling. Place the kale into a bowl and cover with boiling water. Allow to stand for 2 minutes, then drain. Place kale between absorbent kitchen paper and squeeze out any excess moisture. Place ricotta, eggs, milk and parmesan into a bowl and whisk to combine. 36 FamilyCARE

Add the kale, parsley, dill, salt and pepper and mix to combine. Pour into the baked pastry shell, top with the feta and bake for 35–40 minutes or until just set. Serves 4.

TIP! You can switch up parsley or dill for mint, and kale for silverbeet or rainbow chard leaves. www.carers.net.nz

THE NEW ZUCCHINI SLICE

The much-loved classic gets a fresh makeover. Hearty kale and two different cheeses transform the humble slice into a memorable dish. 850g (about 7) zucchini (courgette), shredded using a julienne peeler ½ cup (28g) shredded mint leaves ¼ cup (60ml) extra virgin olive oil Cracked black pepper 3 cups (720g) fresh ricotta 6 eggs ½ cup (125ml) milk ¾ cup (60g) finely grated parmesan 1 tablespoon finely grated lemon rind 3 cups (100g) firmly packed shredded kale leaves 2 green onions (scallions), finely sliced Sea salt and black pepper Prosciutto Rocket (arugula) leaves, to serve

Preheat oven to 200°C (400°F). Place the zucchini, mint, oil and pepper in a bowl and gently mix. Reserve a quarter of the mixture and set aside. Place the remaining zucchini mixture, ricotta, eggs, milk, parmesan, lemon rind, kale, green onion, salt and pepper in a bowl and mix to combine. Place the ricotta mixture into a 20cm x 25cm (8 inch x 10 inch) baking dish and arrange the reserved zucchini mixture around the edge. Bake for 40–45 minutes or until cooked. Serve warm with prosciutto and rocket leaves. Serves 4-6. To ensure your zucchini remains crispy, don’t add salt to your zucchini mixture.

TIP! If you don’t have a julienne peeler use a regular peeler.

UPSIDE-DOWN SUMMER PAVLOVA

Add the cornflour mixture to the egg white mixture and gently fold through. Spoon the meringue mixture over the top of the fruits. Reduce oven temperature to 140°C (275°F) and bake for 1 hour or until the meringue has crisp edges. Serve warm or chilled with whipped cream. Serves 6-8.

All the summertime sweetness without the fuss! This recipe literally turns the classic pav on its head so there’s no assembly needed. 6 white or yellow peaches or nectarines, stones removed and sliced into wedges 6 plums or apricots, stones removed and quartered ⅓ cup (40g) fresh passionfruit pulp 1½ cups (185g) fresh or frozen raspberries Whipped cream, to serve MERINGUE 225ml egg whites (about 6 eggs) 1 cup (220g) raw caster (superfine) sugar ¼ cup (35g) coconut sugar 1 tablespoon cornflour (cornstarch) 1½ teaspoons white vinegar Preheat oven to 160°C (325°F). Place the peaches, plums, passionfruit and raspberries into a deep 25cm x 35cm (10 inch x 13¾ inch) baking dish. Set aside. To make the meringue, place the egg whites in the bowl of an electric mixer and whisk on high speed until soft peaks form. www.carers.net.nz

TIP! I recommend a freestyle approach to the fruits you use in this pavlova – look to the season for inspiration!

Combine the caster sugar and coconut sugar in a bowl. Add the mixed sugars to the egg whites1 tablespoon at a time, whisking until each addition has dissolved before adding more. Once all the sugar has been added, scrape down the sides of the bowl and whisk for a further 10–15 minutes or until thick and glossy. Place the cornflour and vinegar in a small bowl and mix until smooth.

Recipes extracted from One Pan Perfect by Donna Hay (HarperCollins, $55) available at bookstores everywhere. Two copies to be won! Entry form, page 10. FamilyCARE 37

Nationwide Counselling Services A range of advisory and counselling services are available in New Zealand. Many of these can be accessed by phone, text, or email. Don’t feel alone if you’re struggling – reach out for help. 1737

Free call or text 1737 to speak with a trained professional counsellor at any time 24/7. Free counselling service: depression, anxiety, suicidal thoughts, feeling down or overwhelmed. Highly recommended as first point of contact for callers seeking help.

AIcohol Drug Helpline

0800 787 797 or text 8681 (24/7); online chat at www.alcoholdrughelp.org.nz If you are concerned about your own or someone else’s drinking or drug taking, the Alcohol and Drug Helpline can assist with information, insight and support.

Anxiety New Zealand

Helpline 0800 269 4389. Online therapy and Covid-19 help resources available. www.anxiety.org.nz

Depression Helpline

0800 111 757 or free text 4202 to talk to a trained counsellor for support or to ask any questions. www.depression.org.nz/contact-us

EAP Services

Employee Assistance Programme – providing practical assistance to employees when personal or work issues arise that may impact on their ability to do their job or affect their wellbeing (confidential counselling services across NZ and internationally). Freephone: 0800 327 669 www.eapservices.co.nz

Gambling Helpline

24-hour Freephone: 0800 654 655 www.gamblinghelpline.co.nz

Kidsline

0800 543 754 (0800 KIDSLINE). For young people up to 18 years of age 24/7. www.kidsline.org.nz

Lifeline

0800 543 354 (0800 LIFELINE). Lifeline trained counsellors deal with many kinds of issues including psychological and emotional distress, financial and work issues, marriage and family/wh nau problems and with callers who are lonely, ill, depressed or the victims of violence or abuse. Text ‘Help’ to 4357 www.lifeline.org.nz

Rural Support Trust

Helpline 800 787 254. Chat to someone who understands, because they’ve been there. www.rural-support.org.nz

Salvation Army

0800 53 00 00. Supporting families and individuals in need with budgeting advice, food and clothing assistance, life skills programmes and other comfort and support. www.salvationarmy.org.nz

Samaritans

0800 726 666. Confidential, non-religious and non-judgmental support to anyone who may be feeling depressed, lonely, or may be contemplating suicide. www.samaritans.org.nz

SPARX

An interactive self-help online tool for young people with mild to moderate depression and anxiety: www.sparx.org.nz 0508 477 279 or free text to 3110

Suicide Crisis Helpline

0508 828 865 (0508 TAUTOKO)

Supporting Families in Mental Illness

Northern Region, 0800 732 825; Central North Island, 0800 555 434; South Island, 0800 876 682. Information and support for families/whānau.

The Lowdown

Free text 5626. Support and information for young people experiencing depression or anxiety. www.thelowdown.co.nz

Victim Support

0800 842 846. Free 24/7 support. nationaloffice@victimsupport.org.nz www.victimsupport.org.nz

What’s Up

0800 942 8787 (0800 WHATSUP) For 5 - 18 year olds. Available 12.00pm – 11.00pm M-F or 3.00pm – 11.00pm weekends. Online chat is available from 5.00pm – 10.00pm daily at: www.whatsup.co.nz

Youthline

Mental Health and Addictions Service. Youthline works with young people, their families and those supporting young people. Call 0800 376 633; Free text 234; Email: talk@youthline. co.nz or online chat at www.youthline.co.nz

In emergencies always phone 111 0800 777 797

centre@carers.net.nz

IS YOUR WORKPLACE CARER FRIENDLY?

CARERS NZ CAN HELP!

IF YOU'RE A FAMILY CARER, ASK YOUR EMPLOYER TO BE CAREWISE

www.carewise.net.nz EASY STEPS TO CREATE A CARER FRIENDLY WORKPLACE

Employers sign a commitment to be CareWise

Workplaces receive a CareWise welcome pack and recognition certificate

Check how carer friendly you are currently using our SelfReview tool

Carers NZ provides free resources, updates, and fun things for CareWise workplaces

Learn how to be more carer friendly in five priority areas

NZ and global research and news are regularly shared with CareWise employers

Our Action Plan template helps employers tailor steps to ensure a carer friendly workplace

Carers NZ supports working carers and their employers at an early stage, to reduce stress and help carers keep working and earning!

Become CareWise - be a carer friendly employer Carers NZ will keep you informed about issues important to family carers, and provide practical one to one support for caring staff. We can also help you lead carer focus groups in your workplace!

FamilyCARE 39

1 million + New Zealanders care for friends and family members who are unwell or have an ongoing condition or disability. Almost 90% of carers are workforce age. They can struggle to juggle employment and caring for loved ones. CareWise can help.

CareWise Spotlight

Transtasman insurance specialist Suncorp was one of our first CareWise employers! Melissa Bell is a senior in-house lawyer for insurance provider Suncorp New Zealand, providing legal partnership, support and advice to all areas of their life and general insurance businesses. Melissa and husband Chris Bowden also have three children aged 4, 7 and 10. Their eldest, who attends a specialist school, has a brain impairment and an intellectual disability. He has communication challenges, safety needs and high support needs. Melissa says it can be a juggle to balance working for a living alongside her caring role. "While every family carer will have a different experience, in general we don’t have the same options or flexibility as families who aren’t also carers." After-school groups and holiday care are not currently an option for Melissa’s son, for example. “We rely on having arrangements in place for appropriate one-on-one care that is appropriate for his needs. That kind of additional pressure alone can exclude carers from many employment opportunities.” She says her family is lucky to have the option of this extra support, which isn’t available to every family due to barriers like cost or complexities around care needs. Suncorp New Zealand has supported Melissa with flexible work options that allow her to balance her caring, parenting and working roles. “I work four days per week so can accommodate medical and therapy appointments for my son. Suncorp also offers additional flexible leave, which I take when we have medical or school appointments,” she says. Suncorp places a strong emphasis on diversity and inclusivity, as well as flexibility, she says. “My leader is supportive of me juggling my hours around caring commitments. I also have a friendly, supportive team.” Melissa's advice to employers, based on her experiences as a family caregiver who also works, is to not focus on any perceived limitations when interviewing potential team members who have caring responsibilities at home. “Research shows that diverse teams deliver enhanced results. Carers will bring different experiences and perspectives to your workplace, and this might give your team an edge over competitors. How can we hope to empathetically serve customers with care responsibilities or disabilities if we don’t have carers and people with disabilities employed in our workplaces?” www.carers.net.nz 40 FamilyCARE

Carers may reward employers’ confidence in selecting them with enhanced loyalty and commitment, she says. Melissa suggests that family carers seeking work should think about the skills they've developed in their role and how these might benefit a potential employer. “Many carers are uniquely experienced in juggling many balls, and staying calm and focused in the face of the unexpected!” She was honest with Suncorp from the start - she felt it was important that her employer be aware of her life commitments outside of work. “It can be daunting applying for a new role without feeling that our caring responsibilities will disadvantage us, but I would encourage others in my position to have a frank conversation with any potential employer,” Melissa says. "I explained the flexibility I needed and why I wanted to work part-time. I’m lucky this wasn’t a problem for Suncorp, but I like to think that my work ethic and the quality of the work that I do more than makes up for any perceived negatives associated with my caring responsibilities.” “COVID-19 lockdowns have taught us that employees can and have given up a great deal to continue working while caring and home schooling." "If your caring is going to be a problem, then perhaps they aren’t the right employer for you.” FamilyCARE 40 www.carers.net.nz

SUPPORTING FAMILY CARERS THROUGH COVID-19 The past two years have been a rollercoaster for everyone. Those with caring responsibilities for a friend or family member have faced extra hurdles, such as disrupted support services and needing to support home schooling while also working from home. Here are tips to help caring staff get through the pandemic. Sign up for CareWise - it's a free program supported by the Ministry of Social Development to help carers keep working and earning. Join at https://carewise.net.nz Raise awareness and visibility of carers in your workplace using the online toolkit you can access once you've joined the program. It includes in-house communications, survey templates, workplace posters, and more. Signpost practical support available to carers in your organisation. Promote what's available as a carer friendly employer - wellbeing resources for all staff, emphasising the relevance to family carers in the workplace, and direct caring staff to support organisations who can help, such as Carers NZ. Create an intranet page with information and links to guide caring staff to available help. Carers NZ can assist when you're setting up your page. Make support for carers explicit in your policies and procedures. Ensure these have 'heart' for carers by mentioning them in areas such as flexible work, leave arrangements, external support available through your organisation, and resources on offer to staff. Carers NZ can help! Offer peer support through in-house networks even if these are via Teams or Zoom during the pandemic. Consider how the pandemic might be affecting the carers who work for you. Ask how things are going, and talk about ways to provide additional flexibility or support, even if this is just about 'what ifs' (what if we have another lockdown, for example).

wellbeing

There are now 150+ CareWise workplaces in New Zealand at 600+ locations, committed to carer friendliness for 60,000+ staff! Ask your employer to join CareWise free at https://carewise.net.nz

Help for Carers! Do you support a friend or family member who is ill, has disabilities, or a chronic condition? Carers NZ offers useful information, and advice about available help around the country! We are a national not for profit that works with many other community, government, and charitable organisations to support those in caring situations. Carers NZ assists carers directly via its 0800 and email services, and acts as Secretariat for the New Zealand Carers Alliance of 50+ national not for profits who are working in unity to give carers public visibility and a voice in decision-making that affects them. Phone our National Resource Centre to request a free carer infopack or for a referral to a carer support network in your area. It's free to join our network (just call our 0800 helpline) or email centre@carers.net.nz You'll receive regular e-newsletters, email and posted updates, and we'll keep you informed about important news all carers should know about. We'll also let you know about learning and social events you might like to attend in your area, or online! You might also like to check out our web space that's just for carers. Visit the site regularly to see new articles, blog posts, and helpful information to support you in your role!

Visit www.carers.net.nz Email centre@carers.net.nz Facebook www.facebook.com/carersnz Twitter #carersnz Pinterest CarersAir

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Phone Carers NZ's National Resource Centre Monday to Friday during business hours: 0800 777 797 FamilyCARE 41

COVID-19: Family, whānau and āiga carers 16 December 2021 The health and disability workforce is currently under pressure due to the mandated vaccination order. Providers may have to reduce household management services and client visits to enable them to focus support to those most in need. If you receive home and community support services and are concerned about what this might mean, please communicate with your provider about your needs over the next few months. See the full advisory on the Ministry of Health’s website (health.govt.nz) by searching ‘home and community support services’.

Carers are important and working hard during COVID-19

Carers are important and make a significant contribution to the quality of the lives of the friends, family, whānau and āiga members they support. Caring is at the heart of a compassionate community and underpins who we are and what we value. Carers’ work is of huge social and economic value to New Zealand. The role of a carer becomes even more challenging during New Zealand’s response to the COVID-19 pandemic. You are performing a key frontline role in keeping things together in your families, whānau and āiga and we acknowledge and value you.

There’s lots of helpful information for carers

We know that you may be doing more than usual, so we are thinking of you in how we provide information, funding and access to services. Some of the answers are evolving and we will work with Carers NZ, the Carers Alliance, service providers and other partners to keep you informed. This information has been brought together to make it easy for you to find the support and advice you need. While we will revise this resource as required, things do change, so please regularly check the following COVID-19 and carers online resource sites: • • •

covid19.govt.nz Ministry of Health’s website (health.govt.nz) and also search ‘COVID-19 carers’ Ministry of Social Development’s website (msd.govt.nz) and also search ‘carers COVID-19 information’ including the resource ‘A Guide for Carers’

If you do not have internet access to check on the latest news, please use the radio, TV and toll-free phone numbers such as for Carers NZ, Healthline COVID-19 enquiries, Work and Income and others. Other useful sources of information are provided at the end of this document.

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COVID-19 vaccines COVID-19: Family,

carers

whānau and āiga

Information about COVID-19 vaccines, booster doses, and how to book an appointment is available on the Ministry of Health website (health.govt.nz) and select ‘COVID-19 vaccines’. DHBs and all other providers will use a whānau-centred approach to vaccinate family, whānau and āiga 16 December 2021 members of older people, disabled people and people with relevant underlying health conditions when they accompany to the appointment. and under providers will consider whether: The healththem and disability workforce isDHBs currently pressure due to the mandated vaccination order.

Providers may have to reduce household management services and client visits to enable them to focus support those whānau most in need. you receive community support services and are concerned • thetofamily, or āigaIf members arehome carersand of the person to be vaccinated about what this might mean, please communicate with your provider about your needs over the next few • there is enough vaccine supply to meet demand months. • the family, whānau or āiga members have difficulty accessing the health system, including Māori, Pacific peoples, disabled people, rainbow communities, ethnic minorities and people in remote See theregions full advisory on the Ministry of Health’s website (health.govt.nz) by searching ‘home and community • there are other risk factors in the household, such as overcrowding or a multi-generational living support services’. arrangement.

Carers are important and working hard during COVID-19

More information on vaccines and booster doses is available on the Unite Against Covid-19 website theaMinistry of Health website and select ‘COVID-19 vaccines’. Carers (covid19.govt.nz) are important andand make significant contribution to(health.govt.nz) the quality of the lives of the friends, family, whānau and āiga members they support. Caring is at the heart of a compassionate community and underpins who we are and what we value. Carers’ work is of huge social and economic value to New Zealand.

Vaccination mandate

ToThe keep vulnerable people safe, even all health are required to beNew vaccinated. role of a carer becomes morestaff challenging during Zealand’s response to the COVID-19 pandemic. You are performing a key frontline role in keeping things together in your families, whānau and āiga and value to you. Carers whowe areacknowledge employed orand engaged provide care and support services within a home or place of residence and are funded by the Ministry of Health, a DHB, or ACC are required to be vaccinated. Carers who are not paid by these organisations are not required to be vaccinated. More information about the vaccination mandate including the exemptions process can be found on the Unite Against Covid-19 website (covid19.govt.nz) by doing searching ‘Mandatory for workers’ andinthe Ministry of Health website We know that you may be more than usual,vaccination so we are thinking of you how we provide information, (health.govt.nz) by searching ‘COVID-19: vaccinations’. funding and access to services. Some ofMandatory the answers are evolving and we will work with Carers NZ, the Carers Alliance, service providers and other partners to keep you informed.

There’s lots of helpful information for carers

Proof of vaccination status This information has been brought together to make it easy for you to find the support and advice you need.

My Vaccine is an official record of COVID-19 vaccination status for useregularly in New Zealand. It allows you to While we Pass will revise this resource asyour required, things do change, so please check the following access certainand events andonline venuesresource operating under the COVID-19 Protection Framework (traffic light system). More COVID-19 carers sites: information on how to obtain and use your My Vaccine Pass can be found on the Unite Against COVID-19 website (covid19.govt.nz) and search ‘My vaccine pass’. • covid19.govt.nz • Ministry of Health’s website (health.govt.nz) and also search ‘COVID-19 carers’ • Ministry of Social Development’s website (msd.govt.nz) and also search ‘carers COVID-19 information’ including the resource ‘A Guide for Carers’ COVID-19 is likely to be with us for some time. We must manage the risks for ourselves and the people we care for. In New Zealand, the COVID-19 Protection Framework (also known as the traffic light system) will continue to protect If you do not have internet access to check on the latest news, please use the radio, TV and toll-free phone us, while also providing more certainty and stability as possible for people and businesses, reducing the need for numbers such as for Carers NZ, Healthline COVID-19 enquiries, Work and Income and others. widespread lockdowns. It minimises the impact and provides protection from COVID-19 through Green, Orange Other useful sources of information are provided at the end of this document. and Red settings. Stay informed about New Zealand’s current COVID-19 settings and find out what this means for you and those you support on the Unite Against COVID-19 website (covid19.govt.nz) and searching ‘Traffic lights’.

COVID-19 Protection Framework

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COVID-19: Travel carers

Family, whānau and āiga

Travel is often an essential activity in your daily life as a carer and for your family, whānau or āiga members receiving care. More information about travel will be available on the Unite Against COVID-19 website (covid19.govt.nz) and searching ‘travel’. 16 December 2021

Health and disability The health and disability workforce is currently under pressure due to the mandated vaccination order.

Providers may have to reduce household management services and client visits to enable them to focus How yourself the people you care forsupport services and are concerned supportto toprotect those most in need. Ifand you receive home and community Some aremight moremean, vulnerable tocommunicate illnesses. Thiswith can include both the people careover for and yourself. about people what this please your provider about youryou needs the next few There are simple steps that can be taken to protect you and your family, whānau and āiga. months. Good hygiene is always important – regularly wash and thoroughly dry your hands, and cough and sneeze See the full advisory on the Ministry of Health’s website (health.govt.nz) by searching ‘home and community into yourservices’. elbow. It’s also important to: support

Carers areand important and working hard during COVID-19 • stay home seek medical advice if unwell •

regularly clean high-touch objects, items and surfaces

Carers and make a significant contribution to the quality of the lives of the friends, family, • are getimportant a test if necessary. whānau and āiga members they support. Caring is at the heart of a compassionate community and underpins who we are and whatdistancing we value. Carers’ work is hugeknow socialorand New Zealand. Maintaining physical from people weofdon’t seeeconomic regularly value is alsotoimportant. Use face masks

or coverings on public transport and when you can’t physically distance from others you don’t know. The role of a carer becomes even more challenging during New Zealand’s response to the COVID-19 pandemic. are performing a key frontline role in keeping things together in your and families, whānau Protecting You vulnerable people, and those they have contact with, is vital in preventing managing theand risk of āiga and we acknowledge and value you. both COVID-19 infection and its complications and other infectious diseases. More information is available on the Ministry of Health’s website (health.govt.nz) by searching ‘Protecting yourself and others from COVID-19’.

There’s lots of helpful information for carers

Assessment and COVID-19 We know that you maytesting be doingfor more than usual, so we are thinking of you in how we provide information,

People COVID-19 symptoms should get assessed and may need to be tested. ofNZ, the the time, a fundingwith and any access to services. Some of the answers are evolving and we will work withMost Carers Carers COVID-19 test isproviders free of charge. Alliance, service and other partners to keep you informed. The may wear protective equipment as for a mask, gown, facesupport shield and This nurse information has personal been brought together to make(such it easy you to find the andgloves) advice and you will need. ask you questions about your symptoms, general health, where you live and who you live with. While we will revise this resource as required, things do change, so please regularly check the following

COVID-19 and carers online resource sites: Testing is done by swabbing the back of your nose or throat. A swab is like a small cotton-bud with a longer stick.• The sample goes to a laboratory to be analysed. You will be told when and how you will get your results covid19.govt.nz and •what to do while you are waiting(health.govt.nz) for the results. and also search ‘COVID-19 carers’ Ministry of Health’s website

Ministry of Social Development’s website (msd.govt.nz) and also search ‘carers COVID-19 information’ including the resource ‘A Guide for Carers’ More information on who should get assessed for a test for COVID-19, how testing works, and where to get tested can be found on the Ministry of Health’s website (health.govt.nz) by searching ‘Assessment and testing for COVID-19’. If you do not have internet access to check on the latest news, please use the radio, TV and toll-free phone •

numbers such as for Carers NZ, Healthline COVID-19 enquiries, Work and Income and others. Other useful sources of information are provided at the end of this document.

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COVID-19: Family, whānau and āiga carers

Contact tracing and remembering where you’ve been

If someone has COVID-19, the local public health unit will find out if anyone else may have been in contact with them, to see if they have also been infected. This is called contact tracing. If 16 youDecember are called2021 by our contact tracers, please take or return the call. The public health unit, Ministry or Healthline will provide you with advice on self-isolation and check on your health and wellbeing.

The health and disability workforce is currently under pressure due to the mandated vaccination order. Providers mayallows have to household andand client enable to focus Contact tracing forreduce testing, isolation management and treatmentservices if required is avisits key to part of ourthem COVID-19 support to those most in need. If you receive home and community support services and are concerned strategy. about what this might mean, please communicate with your provider about your needs over the next few Anmonths. important part of contact tracing is remembering where you’ve been and who you’ve seen. You can use

the NZ COVID Tracer app that creates a digital diary, or the NZ COVID Tracer diary booklet to help. See the full advisory on the Ministry of Health’s website (health.govt.nz) by searching ‘home and community support services’. More information on contact tracing and keeping track of where you have been can be found on the Ministry of Health’s website (health.govt.nz) by searching ‘Contact tracing for COVID-19’.

Carers are important and working hard during COVID-19

What if youand or make the person you care fortotests positive Carersto aredo important a significant contribution the quality of thefor livesCOVID-19 of the friends, family,

Most people those whois are fullyheart vaccinated, are likely to have a mild to moderate whānau andwith āigaCOVID-19, members particularly they support. Caring at the of a compassionate community and underpins viral illness but will fully recover at home or in suitable alternative accommodation. who we are and what we value. Carers’ work is of huge social and economic value to New Zealand. Care theofcommunity is where people supportedduring by local careZealand’s providersresponse to ensure health, welfare Theinrole a carer becomes even moreare challenging New totheir the COVID-19 and wellbeing needs are met while theyfrontline are recovering from COVID-19. pandemic. You are performing a key role in keeping things together in your families, whānau and āiga and we acknowledge and value you. Being prepared for COVID-19 and making a plan is important. More information is available from the Unite Against COVID-19 website (covid19.govt.nz) and searching ‘Be prepared for COVID-19’.

There’s lots of helpful information for carers

that you may doing more than usual, so will we be areabout thinking of situation, you in how we provide If We youknow do test positive for be COVID-19, the initial contact your where best to information, isolate, and funding and access to services. Some of the answers are evolving and we will work with Carers NZ, the Carers any support that is needed. Alliance, service providers and other partners to keep you informed. You will also be provided a contact person who will be in touch with you often to make sure that you and Thiswhānau information hasand been brought together it easy for youfor to 24-hour find the health supportsupport. and advice you need. your are safe supported and giventoa make telephone number If you need While we will reviseyour thisGP resource required, things pharmacy do change,who so please regularly check the medication, contact or youraslocal community will make arrangements forfollowing your COVID-19 and carers online resource sites: medication to be safely delivered to your home. • covid19.govt.nz Key points of contacts for health support may differ across the country. Your point of contact may be an • Ministry of from Health’s and alsoprovider search ‘COVID-19 carers’ individual or a team yourwebsite general(health.govt.nz) practice, primary care or from a local community health • Ministry of Social Development’s website (msd.govt.nz) and also search ‘carers COVID-19 information’ service. including the resource ‘A Guide for Carers’

More information is available from the websites of Unite Against COVID-19 (covid19.govt.nz) and Ministry of If you(health.govt.nz) do not have internet access to check onCare the latest please use the radio, TV and toll-free phone Health by searching ‘COVID-19 in thenews, community’. numbers such as for Carers NZ, Healthline COVID-19 enquiries, Work and Income and others. Other useful sources of information are provided at the end of this document. Your family, whānau, friends, iwi and neighbours may be able to help by dropping food and other items at the door.

www.carers.net.nz

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COVID-19: Family, whānau and āiga carers

When you’re told you need to isolate, you’ll also be asked if you need any extra support. The Ministry of Social Development (MSD) is coordinating support and connecting people with the right service to help them. If you need help, MSD will connect you with someone. They may be from a local community organisation, a government agency, or a marae-based service or support that iwi have established. 16 December Masks and2021 face

coverings

Masks or face coverings are one important way of keeping you safe as a carer and for protecting others you The disability currently under pressure to the mandated vaccination order. care health for andand have contactworkforce with fromisCOVID-19. The Ministry of due Health does not recommend the use of Providers may have to reduce household management services and client visits to enable them to focus scarves or bandanas. support to those most in need. If you receive home and community support services and are concerned about what this might mean, please communicate with your provider about your needs over the next few In general, we encourage you to wear a mask or face covering whenever you leave your home and cannot months. keep physical distance from others, especially in crowded indoor places. Requirements for masks and face coverings may be different at each COVID-19 Protection Framework setting. See the full advisory on the Ministry of Health’s website (health.govt.nz) by searching ‘home and community support services’. All households should have a supply of masks for each household member.

Carers are important and working hard during COVID-19

People with a disability or physical or mental health condition which makes it difficult to wear a mask or face covering exempt. and If you cannot wear a mask or face covering, you can get lives an exemption card family, to show Carers areare important make a significant contribution to the quality of the of the friends, others when needed. You can request a card from the Disabled Persons Assembly NZ by contacting them whānau and āiga members they support. Caring is at the heart of a compassionate community and underpins on 801 emailing them at info@dpa.org.nz. who04we are9100 and or what we value. Carers’ work is of huge social and economic value to New Zealand. It is also important to trust that others doing theduring right thing. If someone does not a mask or face The role of a carer becomes even moreare challenging New Zealand’s response towear the COVID-19 covering, they may have a legitimate reason. When you are near others who are not wearing mask and do pandemic. You are performing a key frontline role in keeping things together in your families,awhānau and not them, keep a distance. āigaknow and we acknowledge and value you. More information on face masks and coverings at different COVID-19 Protection Framework settings, and how to wear them correctly and safely, can be found on the Ministry of Health’s website (health.govt.nz) by searching ‘Use you of masks and face more coverings’ and the Against COVID-19 by We know that may be doing than usual, soUnite we are thinking of you inwebsite how we(covid19.govt.nz) provide information, searching ‘Wear a face covering’. funding and access to services. Some of the answers are evolving and we will work with Carers NZ, the Carers

There’s lots of helpful information for carers Alliance, service providers and other partners to keep you informed.

People at higher risk

This information has been brought at together to make it effects easy forofyou to find the advice you need. Information for people considered higher risk of the COVID-19 andsupport for theirand family, whānau and While we will revise this resource as required, things do change, so please regularly check the following āiga is available on the Ministry of Health’s website (health.govt.nz) by searching ‘COVID-19: Higher risk COVID-19 people’. and carers online resource sites: • covid19.govt.nz Caring for older people

of Health’s website (health.govt.nz) search ‘COVID-19 You •canMinistry find information specifically for older peopleand andalso their families, whānaucarers’ and āiga during the COVID• Ministry of Social Development’s website (msd.govt.nz) and also search ‘carers COVID-19 information’ 19 response on the Ministry of Health’s website (health.govt.nz) by searching ‘COVID-19: Older people, their including the resource ‘A Guide for Carers’ family and whānau’. If you do not have internet access to check on the latest news, please use the radio, TV and toll-free phone Supporting a person with dementia numbers such as for Carers NZ, Healthline COVID-19 enquiries, Work and Income and others. You may experience extra pressure in supporting someone with dementia during the COVID-19 response. Other useful sources of information are provided at the end of this document. More information for family, whānau, āiga, carers and supporters of people with dementia who are living at

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COVID-19: Family, whānau and āiga Caring for disabled people carers

home under different COVID-19 Protection Framework settings is available on the Ministry of Health’s website (health.govt.nz) by searching ‘COVID-19: People with dementia at home’.

Information for disabled people and their families, whānau, āiga and carers during the COVID-19 response, as well links to accessible information in alternate formats, is available on the Unite Against COVID-19 website 16 as December 2021 (covid19.govt.nz) by searching ‘Information for disabled people’. The health and disability workforce is currently under pressure due to the mandated vaccination order.

Getting duringmanagement COVID-19services and client visits to enable them to focus Providersdisability may have tosupport reduce household

to those you mostcare in need. If yousupport receivebecause home and support services concerned If support you or someone for needs of acommunity disability, you’ll need to talkand to aare Needs about whatand thisService might Coordination mean, please communicate your provider about your needs over thetheir next few Assessment service (NASC).with More information for disabled people, and months.whānau, āiga and carers about disability support services is available on the Ministry of Health’s families, website (health.govt.nz) by searching ‘NASC’.

See the full advisory on the Ministry of Health’s website (health.govt.nz) by searching ‘home and community

Parents support services’.

A wide range of information and links to help you care for your tamariki, rangatahi and whānau (including explaining COVID-19, Well Child Tamariki Ora, parents with babies, whānau Māori, advice, support and resources) is available on the Ministry of Health’s website (health.govt.nz) by searching ‘COVID-19: Parents’.

Carers are important and working hard during COVID-19 Carers are important and make a significant contribution to the quality of the lives of the friends, family,

Respite – ‘taking a break’ whānau and āiga members they support. Caring is at the heart of a compassionate community and underpins Respite orare 'taking break' very Carers’ important to is support family, and āiga carers’ mental and physical who we and awhat weisvalue. work of huge socialwhānau and economic value to New Zealand. health and wellbeing. Carers need to be able to use their respite and carers support allocations to support their through the COVID-19 response. Thewellbeing role of a carer becomes even more challenging during New Zealand’s response to the COVID-19

pandemic. You are performing a key frontline role in keeping things together in your families, whānau and Respite care from facility-based respite services to individualised funding and Carer Support āiga and weranges acknowledge and value you. (particularly for people allocated Carer Support through disability support services funded by the Ministry of Health). Respite care is available at all levels of the Protection Framework. All publicly funded health and disability services are exempt from the COVID-19 Public Health Response (Protection Framework) Order 2021, soWe while thethat vaccination of client/whānau informs planning for the of support, it will not know you maystatus be doing more than usual, so we are thinking ofsafe you delivery in how we provide information, otherwise affect the decision to provide support. funding and access to services. Some of the answers are evolving and we will work with Carers NZ, the Carers

There’s lots of helpful information for carers

Alliance, service providers and other partners to keep you informed. Respite supports or services are allocated by Needs Assessment and Service Coordination agencies (NASCs) and are funded by has the been Ministry of Health (for disability needs) and district health boards (DHBs) This information brought together to make support it easy for you to find the support and advice you(for need. aged care, mental health and addiction and long-term chronic health needs). While we will revise this resource as required, things do change, so please regularly check the following COVID-19 and carers online resource sites: If you are concerned about your wellbeing or the wellbeing of your family or whānau, and/or feel desperate for support you should talk to your NASC immediately. Emergency or urgent, respite may be available. You • covid19.govt.nz should• make your of concerns when(health.govt.nz) you talk to your NASC. Ministry Health’sclear website and also search ‘COVID-19 carers’

Ministry of Social Development’s website (msd.govt.nz) and also search ‘carers COVID-19 information’ including resource ‘A Guide forNeeds Carers’ For a list of all NASCthe organisations, visit the Assessment and Service Coordination Association (NASCA) website (nznasca.co.nz). •

If you do not have internet access to check on the latest news, please use the radio, TV and toll-free phone as for Carers NZ, Healthline enquiries, and Income others. Innumbers addition,such information on respite for carersCOVID-19 and people receivingWork disability supportand services is available on Other useful information are provided at the end‘Respite of this document. the Ministry of sources Health’sofwebsite (health.govt.nz) by searching supports and services’; and for carers

www.carers.net.nz

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COVID-19: Family, whānau and āiga carers

and people with mental health and addiction, long-term chronic health conditions, and aged care needs through district health boards (DHBs) is available from each DHB and the relevant NASC. Visit the Carers NZ website (carers.net.nz) to download a free copy of the Time Out Guide, a guide to help carers plan and organise respite breaks. The Carers NZ site includes other respite planning tools you may find helpful. 16 December 2021 The health and disability workforce is currently under pressure due to the mandated vaccination order. Wellbeing Providers may have to reduce household management services and client visits to enable them to focus It’s important to remember that, when you are caring for someone else, you also need to take care of support to those most in need. If you receive home and community support services and are concerned yourself. A free national mental health and addiction support service is available 24/7 – call or text 1737. about what this might mean, please communicate with your provider about your needs over the next few Information on other places where you can find mental health and wellbeing support is available on the months. Ministry of Health’s website (health.govt.nz) by searching ‘COVID-19: Mental health and wellbeing resources’. See the full advisory on the Ministry of Health’s website (health.govt.nz) by searching ‘home and community support services’.

Financial support

If you need help to pay for food Carers are important and

working hard during COVID-19

If you cannot pay for food, you may be able to get support from Work and Income with urgent financial Carers are important and make a significant contribution to the quality of the lives of the friends, family, support and ongoing needs, including food grants. You don’t need to be an existing Work and Income client whānau and āiga members they support. Caring is at the heart of a compassionate community and underpins to get this help. To learn more or check your eligibility, call 0800 559 009 or visit the Work and Income who we are and what we value. Carers’ work is of huge social and economic value to New Zealand. website. The role of a carer becomes even more challenging during New Zealand’s response to the COVID-19 Local food banks may also be able to help. You can find these on the Family Services Directory website. pandemic. You are performing a key frontline role in keeping things together in your families, whānau and āiga and we acknowledge and value you.

Further advice on accessing food

There’s lots of helpful information for carers

Find more advice on access to food and essential services on the Unite Against Covid-19 website (covid19.govt.nz). We know that you may be doing more than usual, so we are thinking of you in how we provide information, funding andfinancial access to services. Some of the answers are evolving and we will work with Carers NZ, the Carers General support Alliance, service providers and other to keep you informed. You may be eligible for financial helppartners from Work and Income for urgent costs like: accommodation (rent, board, emergency housing) This •information has been brought together to make it easy for you to find the support and advice you need. • repairing or replacing appliances While we will revise this resource as required, things do change, so please regularly check the following • emergency dental treatment COVID-19 and carers online resource sites: • emergency medical treatment • health travel costs • covid19.govt.nz • Ministry of Health’s website (health.govt.nz) and also search ‘COVID-19 carers’ You •don’t need to on aDevelopment’s benefit to get website help. You(msd.govt.nz) can find out and about thesearch supports available for individuals, Ministry of be Social also ‘carers COVID-19 information’ families,including employers and self-employed people affected by COVID-19 by visiting the Work and Income website the resource ‘A Guide for Carers’ (workandincome.govt.nz) and also checking your eligibility by searching ‘Check what you might get’. If you do not have internet access to check on the latest news, please use the radio, TV and toll-free phone If you’re not sure what you might be eligible for, or you’d like toWork talk to someone your situation, you numbers such as for Carers NZ, Healthline COVID-19 enquiries, and Incomeabout and others. can call Work and Income on 0800 559 009. Other useful sources of information are provided at the end of this document.

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COVID-19: Family, whānau and āiga carers

Work and Income clients

You can use MyMSD to update your personal details, check your payments and apply for help with things like one-off costs for food. If you still need help, you can call Work and Income on 0800 559 009. More information related to COVID-19 support and changes can be found at the Work and Income website (workandincome.govt.nz). 16 December 2021

The health and disability workforce is currently under pressure due to the mandated vaccination order. Help for carers

Providers may have to reduce household management services and(workandincome.govt.nz) client visits to enable them to search focus Information for carers can be found at the Work and Income website and support to those most need. If you receive and up community support services and are concerned ‘Carers’. Please check theinwebpage regularly forhome the most to date information. about what this might mean, please communicate with your provider about your needs over the next few months.

Help for carers in paid employment (including selfSee the full advisory on the Ministry of Health’s website (health.govt.nz) by searching ‘home and community employed) support services’. COVID-19 Wage Subsidy

Carers are important and working hard during COVID-19

For information on COVID-19 Wage Subsidies, visit the Work and Income website (workandincome.govt.nz) and search Subsidy August 2021’. Carers are‘COVID-19 important Wage and make a significant contribution to the quality of the lives of the friends, family, whānau and āiga members they support. Caring is at the heart of a compassionate community and underpins who weSupport are and what we value. Carers’ work is of huge social and economic value to New Zealand. Leave Scheme If you can’t work from home and are required to self-isolate because you meet certain health criteria, your employer eligible for the Leave Support Scheme to help payingresponse you. Youto can get the Leave The role may of a be carer becomes even more challenging during Newkeep Zealand’s thealso COVID-19 Support Scheme you’re self-employed. pandemic. You if are performing a key frontline role in keeping things together in your families, whānau and āiga and we acknowledge and value you. The health criteria for the scheme includes situations where:

There’s lots of helpful information for carers • You are the caregiver of a dependant who has been told to self-isolate for a period by a doctor or

We know thatofficial you may be doing more than usual, Tracing so we are thinking ofthe youdependant in how we needs provide information, health through the National Contact process, and support to do funding and access to services. Some of the answers are evolving and we will work with Carers NZ, the Carers so safely Alliance, service providers and other partners to keep you informed. • You have household members who are considered “higher risk” if they contract COVID-19 and a

doctor has told you to self-isolate (this is to reduce the risk of transmitting the virus to vulnerable householdhas members) This information been brought together to make it easy for you to find the support and advice you need. While we will revise this resource as required, things do change, so please regularly check the following COVID-19 and carers online resource sites: and Income website (workandincome.govt.nz) and search ‘Leave More information can be found at the Work

Support Scheme’. • covid19.govt.nz Ministry of Health’s website (health.govt.nz) andthey alsomay search ‘COVID-19 carers’ Talk to• your employer about your situation and whether be able to apply for the Leave Support • Ministry of Social Development’s website (msd.govt.nz) and also search ‘carers COVID-19 information’ Scheme to help keep paying you. including the resource ‘A Guide for Carers’

Short-Term Absence Payment If you do not have internet access to check on the latest news, please use the radio, TV and toll-free phone

The COVID-19 Short-Term Absence Payment is available for employers and self-employed people to help pay numbers such as for Carers NZ, Healthline COVID-19 enquiries, Work and Income and others. Other useful sources of information are provided at the end of this document.

www.carers.net.nz

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COVID-19: Family, whānau and āiga carers

their employees who can’t work from home while they wait for a COVID-19 test result, or who are a parent or caregiver of a dependant who is staying home while waiting for their COVID-19 test results. Talk to your employer about your situation and whether they may be able to apply for the Short-Term Absence Payment to help keep paying you.

16 December 2021 More information can be found at the Work and Income website (workandincome.govt.nz) and search ‘ShortThe health andpayment’. disability workforce is currently under pressure due to the mandated vaccination order. term absence Providers may have to reduce household management services and client visits to enable them to focus support to those most in need. If you receive home and community support services and are concerned Keeping date about what up this to might mean, please communicate with your provider about your needs over the next few Please keep checking the key government websites for more information on the COVID months. response: covid19.govt.nz and health.govt.nz. See the full advisory on the Ministry of Health’s website (health.govt.nz) by searching ‘home and community support services’.

What other information do you need?

If you have questions or other information you would like to see as a carer please use the links and numbers on this page or get in touch with:

Carers are important and working hard during COVID-19

Carers are important and make a significant contribution to the quality of the lives of the friends, family, • centre@carers.net.nz whānau and āiga members they support. Caring is at the heart of a compassionate community and underpins • Carers NZ free on 0800 777 797 who we are and what we value. Carers’ work is of huge social and economic value to New Zealand. • wecare.kiwi offers practical support for people living on their own or caring for others to help in getting through COVID-19 The •roleContinence of a carer becomes more challenging New Zealand’s response to the COVID-19 NZ – Freeeven Incontinence Help on during 0800 650 659 pandemic. You are performing a key frontline role in keeping things together in your families, whānau and • Work and Income call free on 0800 559 009 āiga•andcarers.strategy@msd.govt.nz we acknowledge and value you. disability@health.govt.nz Healthline COVID-19 enquiries – call free on 0800 358 5453 For guidance on any health issues, call Healthline free on 0800 611 116 or contact your local general practice. We know that you may be doing more than usual, so we are thinking of you in how we provide information, funding and access to services. Some of the answers are evolving and we will work with Carers NZ, the Carers Alliance, service providers and other partners to keep you informed. • • •

There’s lots of helpful information for carers

This information has been brought together to make it easy for you to find the support and advice you need. While we will revise this resource as required, things do change, so please regularly check the following COVID-19 and carers online resource sites: • • •

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feature

The MANAAKITANGA JOURNEY to getting vaccinated for disabled people

1. 1 Getting information about the vaccine and where to get vaccinated You can find information about the vaccine on the Ministry of Health webpage COVID-19 Vaccine Information for Disabled People. There is information in accessible formats available. To find information about vaccination sites and where they are visit HealthPoint or Karawhiua.

2. Booking and getting to your 2 vaccine appointment

To book a vaccination you can: Use BookMyVaccine.nz. The website is accessible and can be used with a screen reader. You can ask for support including: • • • • • •

An NZSL interpreter Support to make decisions Assistance to move around A longer appointment time A quiet or low sensory environment More space to move around

Or call the COVID Vaccination Healthline on 0800 28 29 26 and push 2 to speak to the disability team between 8am – 8pm, Monday to Friday or email: accessiblecovidvaccinations@whakarongorau.nz The team can help you if you need support with transport or would like to discuss whether a home vaccination might be right for you.

3 At the vaccination site 3. You can bring a support person with you. When you get to the vaccination site you will need to sign in. If you need an NZSL interpreter or information in accessible format ask reception. If queuing is hard for you, or you need a quiet space ask the friendly staff for help.

HP7873 | COVID-19 Vaccine – Disability Journey A4 | 3 Nov 2021

When it is your time to get vaccinated you will be directed to a vaccine booth. A vaccinator will ask you a few questions like: Are you feeling well today? What medication do you take? Ask the vaccinator if you have questions. The vaccinator will ask you if you are ok to have the vaccine. You will need to wait 15 minutes after the vaccine. If this is hard for you ask if you can wait somewhere else.

4 Getting your second dose 4. After 3 weeks you need to get your second dose. You can book your second vaccine by: • Booking at the time of your first vaccine • Booking on BookMyVaccine.nz • Contacting the COVID Vaccination Healthline on 0800 28 29 26 (push 2 for disability team)

5. 5 Getting your COVID vaccine record You can get an official vaccination record at app.covid19.health.nz and find out more at Unite Against COVID-19

6. Enjoy summer with your 6 friends and whānau!

If you have a question you can’t answer, try us. The IHC Library is free to use and open to anyone living in New Zealand. We have information on all aspects of intellectual disability, autism and other developmental disabilities. Email us at librarian@ihc.org.nz or phone 0800 442 442.