Your Health & Social Care Support Directory

YOUR FREE GUIDE TO HEALTH & SOCIAL CARE 2016/17

Please take one ...

Health & Social Care Support Directory Covers services in Kingston upon Hull

Issue 3

If your life is affected by Dementia the Alzheimer's Society is here to support you Our Specialist Dementia support service provides information and practical guidance to help people understand dementia, cope with day-to-day challenges and prepare for the future.

Face to face, over the phone or in writing.

We are here to help.

Telephone: 01482 211255 Office opening times: Monday to Friday 9.00am - 5.00pm Email: hull&eastridingservice@alzheimers.org.uk www.alzheimers.org.uk Suite D | Annie Reed Court | Annie Reed Road | Beverley | HU17 0LF

Contents The People’s Panel - Local Decisions, Local People

1-2

Support for Carers

3-4

A - Z Social Care Jargon Buster Your Health Hull

5 - 12 13 - 14

Tell Your GP Your a Carer

15

Managing Medicines - Tips for Carers

16

GPs & GP Surgeries - Kingston upon Hull

17 - 18

Pharmacies - Kingston upon Hull

19 - 20

NHS Hospital Services

21 - 22

NHS Continuing Healthcare Funding

23 - 24

Recognising Mental Health & Support

25 - 26

Taking a Break from Caring

27 - 28

Caring for Someone with Dementia

29 - 30

Caring for Someone with Challenging Behaviour

31 - 32

Learning Disabilities - NHS Annual Health Check

33 - 34

Disability Aids & Equipment

35 - 36

Planning For Your Future Care Needs

37 - 38

Social Care & Independent Living

39 - 40

Social Care & Independent Living - Care in Your own Home

41 - 42

Social Care & Independent Living - Residential & Nursing Homes

43 - 46

Useful Numbers for Support in Kingston upon Hull

47 - 48

Disclaimer This Directory has been compiled to signpost primary health and social care providers throughout Kingston upon Hull.

Whilst we have taken every care in compiling this publication, the publishers and promoters cannot accept responsibility for any inaccuracies. All listings are supplied via the Care Quality Commission (CQC) and NHS Choices.

All signposting services are up to date as of October 2016.

This Directory contains advertising from businesses who are offered the opportunity to reach potential customers through inclusion. However, any information provided by a company or organisation does not carry endorsement or approval of any product or service..

Another quality publication by Healthcare Publications If you require extra copies of this directory or are interested in advertising in future editions please email Healthcare Publications on admin@healthcarepublications.org or visit www.hcpublications.org

Your city, your say If you live in Hull or East Riding, have your say No meetings, you just complete surveys Opportunity to win a free shopping voucher with each survey It only takes 10 minutes to make a difference

Call: 01482 300 300 Text: ‘panel’ 07795 563 000 email: panel@hullcc.gov.uk 1

The People’s Panel - local decisions, local people The People’s Panel consists of 5000 residents who share their views with NHS Hull CCG and Hull City Council four times a year through the People’s Panel Survey.

Join the People’s Panel You can become a member of the People’s Panel online or by post. We always endeavour to make sure that we accommodate the needs of everyone, and will provide other formats for those with particular access needs.

Join online now!

We send a newsletter out once a quarter and contact People’s Panel members around every 6 weeks.

Panel members get involved in lots of ways:  short text and email polls  feedback by Facebook  exclusive events  courses, workshops and conferences You can also benefit from local discounts and take part in prize draws.

Tell us what you think and get involved with the health service, the council, the police, local business and charities. The decision is yours how much or how little you do.

If you have any questions or queries, please do not hesitate to contact us.

The People’s Panel Team Email: panel@hullcc.gov.uk Tel: 01482 300 300 Text: panel to 07795 563000 Post: Freepost RSJC-KKBE-ABXZ, The People’s Panel, Hull City Council, PO Box 15, Hull, HU1 2AB Like us on facebook here www.facebook.com/hullpeoplespanel Follow us on Twitter @ThePeoplesPanel

2

Support for carers There are 6.5 million carers in the UK which is one in 10 of the population.

The Care Act 2014 makes carer’s assessments more widely available to people in caring roles.

Local authorities now have a legal duty to assess any carer who requests one or who appears to need support.  There are around seven million carers in the UK – that is one in ten people. This is rising.  Three in five people will be carers at some point in their lives in the UK.  Out of the UK’s carers, 42% of carers are men and 58% are women.  The economic value of the contribution made by carers in the UK is £132bn a year.  By 2030, the number of carers will increase by 3.4 million (around 60%).  There are currently 800,000 people living in the UK with dementia.  There are 670,000 unpaid carers of people with dementia in the UK.  Two thirds of people with dementia live at home and most are supported by unpaid carers.  In a survey, carers providing more than 50 hours of care per week are twice as likely to report ill-health as those not providing care.  Carers providing high levels of care were associated with a 23% higher risk of stroke.  17% of carers who had taken a break of more than a few hours experienced mental ill-health compared to 36% of carers who did not have such a break since beginning their caring role.

This support could include being offered money to pay for things that make caring easier. Or the local authority might offer practical support, such as arranging for someone to step in when you need a short break. It could also put you in touch with local support groups so you have people to talk to.

A carer’s assessment is a discussion between you and a trained person either from the council or an organisation working on behalf of the council.

The assessment will consider the impact the care and support you provide is having on your own wellbeing, as well as important aspects of the rest of your life, including the things you want to achieve day-to-day.

It must also consider other important issues, such as whether you are able or willing to carry on caring, whether you work or want to work, and whether you want to study or do more socially.

A carer’s assessment looks at the different ways caring affects your life, and works out how you can carry on doing the things that are important to you and your family. It covers your caring role, your feelings about caring, your physical, mental and emotional health, and how caring affects your work, leisure, education, wider family and relationships.

Your physical, mental and emotional wellbeing should be at the heart of this assessment. This means that you can tell the council how caring for someone is affecting your life and what you want to be able to do in your day-to-day life.

A carer’s assessment should also look at your own interests and commitments to see if and how they are disrupted by your role as a carer.

One of the most important parts of your carer’s assessment will be a discussion about your wishes concerning going to work, training or leisure activities.

Your decision to be a carer When your carer’s assessment is done, no assumptions should be made about your willingness to be a carer.

 In a survey, 8% of carers were receiving Disability Living Allowance as a result of their own disability or ill-health.

This can be a very sensitive area, because many of us feel that we have a duty to those we care for. We sometimes rule out other options because we feel we have no choice.

 35% of carers had missed out on state benefits because they didn’t realise they could claim them.

You have the right to choose: • whether to be a carer at all • how much care you are willing to provide • the type of care you are willing to provide

 Out of carers surveyed, 9% had missed out on Carer’s Allowance for 3–5 years, 10% for 5–10 years and 14% for over ten years, because they did not realise they were entitled to it.

3

If you provide care and support to an adult friend or family member, you may be eligible for support from your local council.

When assessing your needs, social services must consider whether your role as a carer is sustainable.

The assessment is about your needs and therefore you should: • have a reasonably detailed discussion about all the matters relevant to you • have the assessment in private if you want to, at a convenient time and place for you • get relevant information, including about welfare benefits you could claim and details of other services • have a chance to identify the outcomes that you want; any services should be appropriate for you and meet your needs • be given flexibility and innovation in identifying services that may meet your needs • have an opportunity to give feedback about the assessment

Ask for an assessment ...

C.I.S.S is here for any member of the public, health or social care professional who wants to know more about unpaid caring & support available.

We are the Main provider of Carer Assessments providing information on your entitlements and community services available to you and person/s you care for.

We support around balancing commitments, taking a step back from caring or becoming more involved depending on what you would like to achieve.

Providing services to those across Hull/registered with Hull GP.

For more information on how to get your Carer’s assessment ...

Carers’ Information and Support Service 30 King Edward Street Hull HU1 3SS Tel: 01482 222220 or visit our website to find our more about our services www.ciss.chcpcic.org.uk

Request your Young Carer’s assessment

The Care Act Care & Support for Adults in England

Know your rights ...

Well-being ...

Local councils must have services to meet different people’s needs. They must always think about your wellbeing.

Prevention ...

Stopping problems before they start. Local councils must think about services that stop problems before they start, or stop them from getting worse as early as possible.

Information and advice ...

Local councils must have good information to help people choose the right care and support.

Councils must give information and advice to everyone who wants it, not just people who have their care and support paid for by the council.

Having all the services people need ...

Local councils must make sure there are lots of different care and support services in their area.

Independent advocacy ...

Councils must involve you in assessments and in planning and checking your care and support. If you find it very difficult to be involved and there is no-one else to speak for you, they must find you an independent advocate.

Care when you leave hospital ...

Hull Young Carers and Sibling Support Service Village Farm Business Centre, Holme on the Wolds East Riding of Yorkshire HU17 7GA

If you need care from the council to stay safe when you leave hospital this needs to be ready on time.

Tel: 01430 810022

Work and having a job ...

Email: siblings@barnardos.org.uk Visit the Barnardos website to find out more about the Hull Young Carer’s Service www.barnardos.org.uk/hull_young_carers.htm

Councils must think about education, training and work when they look at the care and support you need.

Moving from children’s services to adults services ...

Before someone is 18, councils need to help them and their carers plan for the future and the support they might need as an adult.

4

A-Z Social Care Jargon Buster Some of the most commonly used social care words and phrases and what they mean ...

Acute Care

Advocacy

Health care that you receive in hospital following an injury, operation or illness. It is different to any care you may receive for an ongoing health condition from your GP, community nurse or other professionals in the community where you live.

Help to enable you to get the care and support you need that is independent of your local council. An advocate can help you express your needs and wishes, and weigh up and take decisions about the options available to you. They can help you find services, make sure correct procedures are followed and challenge decisions made by councils or other organisations.

Adult Placement Scheme When an adult with a disability or mental health problem lives in an ordinary home with an individual or family who provides them with a place to live and support. It is like a fostering arrangement for adults: adult placement carers must be checked and approved, and the arrangement is monitored by the local council. People may be placed in someone’s home for a short break or on a permanent basis.

Adult Social Care Care and support for adults who need extra help to manage their lives and be independent - including older people, people with a disability or long-term illness, people with mental health problems, and carers.

Adult social care includes assessment of people’s needs, provision of services or allocation of funds to enable you to purchase your own care and support. It includes residential care, home care, personal assistants, day services, the provision of aids and adaptations and personal budgets.

The advocate is there to represent your interests, which they can do by supporting you to speak, or by speaking on your behalf. They do not speak for the council or any other organisation. If you wish to speak up for yourself to make your needs and wishes heard, this is known as self-advocacy.

Appropriate Adult Someone over the age of 18 who stays with you if you have a mental health problem or disability, or are perceived as ‘vulnerable’, and are held by the police for any reason. This person, who should not work for the police, is there to support you and help you understand what is happening.

Assisted Living Housing for older or disabled people, usually privately owned, where you have your own apartment within a larger development, and support (such as help with meals or laundry) is provided to meet your own particular needs.

Autistic Spectrum Disorder Adka Independence Adult Support Services is committed to providing social care and support services for people to enable them to live independently in the community.

Practical Support & Help at Home

We will tailor bespoke care plans for people with: • Learning difficulties • Physical disabilities • Challenging behaviour • Autistic spectrum disorders Adka Independence CQC over (East Yorks) Ltd all rating • Young onset dementia Good • Visually impaired 10th Februa ry 2016 And can help with: • Supported housing • Personal care with 1-2-1 support • Social & community support • Day to day living skills • Encouragement & personal development

Barred List

Community Activities

426 Holderness Road Hull HU9 3DW

5

An official list of people who are unsuitable to work or volunteer with children or with adults who may be at risk of harm or abuse, because of their past record.

If you employ someone regularly to provide personal care, you should expect them to have completed a Disclosure and Barring Service (DBS) check, which will show whether they are on the barred list or not.

Behaviour Disorders Health & Wellbeing

Access our service with your personal budget or direct payment Please don't hesitate to contact us regarding any query you may have: Tel: 01482 215283 • Mob: 07563 746108 www.adka-independence.co.uk

A condition that someone is born with that affects their ability to communicate and interact with the world around them. It is also called autism, and covers a wide range of symptoms. It affects people in different ways, and some individuals need much more help and support than others.

Supported Housing

Health conditions such as attention deficit disorder that may lead to challenging behaviour, as well as to social and emotional problems. People with behaviour disorders may be treated with medicine and/or given psychological support.

Best Interests

Clinical Commissioning Group (CCG)

Other people should act in your ‘best interests’ if you are unable to make a particular decision for yourself (for example, about your health or your finances). The law does not define what ‘best interests’ might be, but gives a list of things that the people around you must consider when they are deciding what is best for you.

These include your wishes, feelings and beliefs, the views of your close family and friends on what you would want, and all your personal circumstances.

A group of GP practices in a particular area that work together to plan and design health services in that area.

Each CCG is given a budget from NHS England to spend on a wide range of services that include hospital care, rehabilitation and community-based.

Capacity The ability to make your own choices and decisions.

In order to do this, you need to be able to understand and remember information, and communicate clearly - whether verbally or non-verbally - what you have decided. A person may lack capacity because of a mental health problem, dementia or learning disability

Care Plan

Your local CCG should work with the council and local community groups to ensure that the needs of local people are being met.

Cognitive Behavioural Therapy A type of therapy that can help you manage your problems by changing the way you think and act. It is often used to treat anxiety and depression and can help you think about how your thoughts, beliefs and attitudes may be affecting your feelings and behaviour.

You may see a therapist face-to-face or take a therapy course online.

A written plan after you have had an assessment, setting out what your care and support needs are, how they will be met (including what you or anyone who cares for you will do) and what services you will receive.

You should have the opportunity to be fully involved in the plan and to say what your own priorities are. If you are in a care home or attend a day service, the plan for your daily care may also be called a care plan.

Care Quality Commission (CQC) An organisation set up by the Government to make sure that all hospitals, care homes, dentists, GPs and home care agencies in England provide care that is safe, caring, effective, responsive and well-led. If you are unhappy with the care or support you receive, you can contact CQC to let them know. Although CQC cannot investigate complaints about an individual person’s treatment or care, it inspects services and will use any information it receives from you to help it decide what to look at during an inspection.

Case Management A way of bringing together services to meet all your different needs if you have an ongoing health condition, and helping you stay independent. If you choose this option, a single, named case manager (sometimes known as a ‘key worker’) will take the lead in coordinating all the care and support provided by different agencies, offer person-centred care and enable you to remain in your own home and out of hospital as much as possible.

Chargeable Services Services that your local council may expect you to pay towards, such as day care or home care.

The law says that the amount the council charges must be reasonable, and councils have to follow guidance from the Government, to make sure that you are not charged more than you can afford to pay. There are some services that the council is not allowed to charge you for, and these are called non-chargeable services.

Kingston House High quality independent supported living services, with 24hr care and support for people with learning disabilities and autism

Stonha m

CQC o Kingston House verall rating G

ood

11th Fe

b 2016

Our aim is for people living at Kingston House to be equipped with the independence, choice and control that will provide them with skills to successfully move forward with their lives.

We also offer ...

Flexible support packages tailored to meet the needs of carers and their families in their caring roles

Want to know more ...

Contact Laura Boyes on

01482 787549

www.homegroup.org.uk 6

A-Z Social Care Jargon Buster Complex Needs

Deprivation of Liberty Safeguards

You may have complex needs if you require a high level of support with many aspects of your daily life and rely on a range of health and social care services. This may be because of illness, disability or loss of sight or hearing - or a combination of these. Complex needs may be present from birth, or may develop following illness or injury or as people get older.

Legal protection for people in hospitals or care homes who are unable to make decisions about their own care and support, property or finances. People with mental health conditions, including dementia, may not be allowed to make decisions for themselves, if this is deemed to be in their best interests. The safeguards exist to make sure that people do not lose the right to make their own decisions for the wrong reasons.

Court of Protection An English court that makes decisions about the property, finances, health and welfare of people who lack mental capacity to make decisions for themselves.

The court can appoint a ‘deputy’ to make ongoing decisions on behalf of someone who lacks capacity. It is also able to grant power of attorney.

Cross-border Placement When your local council finds a place for you in a care home in another council area. This may be because you have requested it, in order to be nearer your family or friends, or because there is no suitable place available in a care home in your home area. You should be involved in any decision to move to a new area, and it cannot happen without your agreement. If you move, your council should let the other council know that you are there, and they should agree which council is responsible for your care.

Daily Living Costs An amount you have to pay to cover things like rent, food and bills if you live in a care home. When the cap on care costs is introduced in April 2020, daily living costs will be excluded from your care account.

When you reach the cap and the council is paying for your care and support, you will still be responsible for contributing to your daily living costs.

Day Services Opportunities to do things during the day, while living in your own home. These may include social activities, education, or the opportunity to learn new skills. What your local council offers will vary, depending on what you need and what is available in your area. You may have to pay something towards the cost.

Delayed Discharge When you are well enough to leave hospital after an illness or accident, but you have to stay there while the care you need in your own home or in another place is arranged.

Deprivation of Assets When you deliberately reduce the amount of savings or property you have, in order to qualify for help from your council with paying for care costs or for various benefits. Your council may judge that you have deliberately reduced your assets if it believes that you knew you would probably need care and support.

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Direct Payments

Money that is paid to you (or someone acting on your behalf) on a regular basis by your local council so you can arrange your own support, instead of receiving social care services arranged by the council. Direct payments are available to people who have been assessed as being eligible for council-funded social care. They are not yet available for residential care. This is one type of personal budget.

Disabled Facilities Grant (DFG) A grant you might be able to get from your local council in order to make changes to your home because you have a disability. Changes include things like widening doors, adding ramps or installing a downstairs bathroom. If the person with a disability is an adult, your household income and savings will be looked at, and you may need to pay towards the cost of the work.

If the person is under 18, the family can get a grant without the parents’ income being taken into account.

If you want to apply for a DFG, you should contact your local council

Discharge Planning If you go into hospital, this is the process of planning when you will leave, where you will go, what you are likely to need once you are out of hospital, and how your needs will be met. You should expect discharge planning to begin as soon as you go into hospital. You should also expect to be part of these discussions and to know what is happening.

Disclosure & Barring Service (DBS) A government organisation that checks people’s criminal records, in order to prevent unsuitable people from working with children or adults who may be at risk of harm or abuse.

Early Intervention Action that is taken at an early stage to prevent problems worsening at a later stage. It may apply to children and young people, or to help that is offered to older people or people with disabilities to enable them to stay well and remain independent

Eligible Care and Support Needs

Gateway Worker

The needs you have for care and support that your council is required by law to meet. Under the Care Act 2014, councils no longer decide for themselves what type of needs they will meet, and now have to follow the new national minimum eligibility threshold. You are likely to have ‘eligible needs’ if you need a lot of help to do things like washing yourself, getting dressed, getting in and out of bed, and keeping your home safe.

A mental health worker such as a nurse, social worker, occupational therapist or psychologist, who can help you with problems such as mild depression, anxiety or stress. Gateway workers work closely with GPs and can give you information and advice about support services in your area that may be helpful for you. You may see a gateway worker at your GP surgery or in your own home.

Extra-care Housing

Health and Wellbeing Board

Similar to sheltered housing, but with additional care and support available for people with illnesses or disabilities who wish to have a home of their own.

Extra-care housing may be an option if living alone at home is difficult, but you do not wish to opt for residential care. It allows you to have your own home, either rented or bought, with personal care and domestic help readily available.

Every council area in England has a Health and Wellbeing Board to bring together local GPs, councillors and managers from the NHS and the council. Their job is to plan how to improve people’s health and make health and social care services better in their area.

Members of the public have the chance to be involved in the work of their local Health and Wellbeing Board through your local Healthwatch.

Financial Assessment

Holistic Care

A discussion that your council may have with you to work out how much you can afford to pay towards the care and support you need. It involves looking at your income, savings and individual circumstances. This will take place after an assessment of your care and support needs.

Care and support that treats you as a whole person and considers all your needs at the same time - physical, psychological, social and spiritual.

Impairment A physical or mental problem, caused by an injury, illness or condition you were born with.

Providing flexible person centred support for adults with learning disabilities.

We provide support to enable people to access social activities in the community and at our day centres.

Home Care / PA Support ...

• • • • • •

1:1 P.A. support Making Social activities your life Personal care a little easier Medication prompts Domestic and shopping support Your support package is designed flexibly across the week to meet your needs.

• Support in your own home or in the community.

Your Life CQC overall rating

Good 5th January 2016

Day Opportunity Support ...

• Support people to access social activities in small groups within the centre or out in the local community.

• Open 7 days a week, 8.30am to 4pm at our Bransholme Unit - 76 North Point Shopping Centre, Goodhart Road, Bransholme, Hull HU7 4EF • Open 5 days a week, 8.30am to 4pm at our Willerby Road Unit: 16 Willerby Rd, Hull, North Humberside HU5 5JJ

If you would like to find out more, please contact us and we will be happy to help

Tel: 01482 341159 www.yourlifehull.co.uk

Your Life CQC overall rating

Good 5th January 2016

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A-Z Social Care Jargon Buster Inappropriate Care

Kinship Care

Care that is not best for you and does not meet your particular needs, that is not in a place where you need or choose to be.

When family or friends care for a child on a full-time basis if their parents are unable to do so. This may be for a short period or permanently.

Integrated Care

Learning Disability

Joined up, coordinated health and social care that is planned and organised around the needs and preferences of the individual, their carer and family.

This may also involve integration with other services for example housing.

A term that is used to describe a brain impairment that may make it difficult for someone to communicate, to understand new or complex information, or to learn new skills.

The person may need help to manage everyday tasks or live independently. Learning disability starts in childhood and has a lasting effect on a person’s development. It can affect people mildly or severely.

Intermediate Care A wide range of services aimed at keeping you at home rather than in hospital, or helping you to come home early from hospital after illness or injury. It is normally made up of a specific programme of care for a fixed period of time, usually up to six weeks, and is free of charge.

Joint Assessment There are two possible meanings to the term ‘joint assessment’: having the needs of the person who cares for you assessed at the same time as your own needs, or having an assessment carried out by more than one type of care professional at the same time.

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Long-term Condition An illness or health condition that you live with, that cannot be cured but can usually be managed with medicines or other treatments. Examples include asthma, diabetes, arthritis, epilepsy and other things.

Mental Capacity Act A law that is designed to protect people who are unable to make decisions about their own care and support, property or finances, because of a mental health condition, learning disability, brain injury or illness. ‘Mental capacity’ is the ability to make decisions for yourself. The law says that people may lose the right to make decisions if this is in their best interests.

Deprivation of Liberty Safeguards are included in the law, to make sure that people are treated fairly.

Motability If you receive a mobility allowance from the Government, you can use the payments you receive to hire a car, scooter or powered wheelchair from a specially established charity, Motability. Your mobility allowance payments then go directly from the Government to Motability. The scheme includes the cost of insurance, breakdown assistance and repairs.

You do not own the vehicle, and it is replaced every few years.

National Minimum Eligibility Threshold The level at which your needs reach the point that your council, by law, has to meet them. From April 2015, every council in England will have to offer care and support services to adults who have a lot of care needs.

This replaces the previous situation, where each council made its own decision about what level of need it would meet.

Needs Assessment The process of considering whether you need help or support because of your age, disability or illness.

Anyone who appears to have a need for care or support - regardless of how severe those needs are or how much money they have - is entitled to a needs assessment, which can be arranged by contacting the adult social services department at your local council and requesting it.

Neglect

Personal Health Budget

When you are mistreated by not being given the care and support you need, if you are unable to care for yourself. It may include not being given enough food, or the right kind of food, being left without help to wash or change your clothes, or not being helped to see a doctor when you need to.

An amount of money to pay for your specific health needs, given to you - or managed for you - by the NHS. It is based on your own individual care plan, which sets out your health goals and how your budget will help you reach them. You can spend it on things like therapies, personal care and equipment. You cannot use it to pay for emergency care or care you usually get from a family doctor.

Non-chargeable Services Care and support services you receive in your home or in your community that the local council does not charge you for.

The law prevents councils from charging for certain things, including assessments and advice about services. On other things (including day care, home care, domestic help and equipment and adaptations), each council makes its own decisions about which services it will charge for and how much the charge will be.

Occupational Therapist

Using a personal health budget is a choice: you do not have to have one unless you want to.

Primary Care The first point of contact in the health service, usually your GP, practice nurse, local pharmacist, dentist or NHS walk-in centre. Primary care doctors deal with a wide range of health problems.

They treat common illnesses, help you manage longterm conditions and refer you to a specialist doctor when necessary.

A professional with specialist training in working with people with different types of disability or mental health needs.

An OT can help you learn new skills or regain lost skills, and can arrange for aids and adaptations you need in your home. Occupational therapists are employed both by the NHS and by local councils.

Outreach Support that you may be offered in your home or community, to help you with a particular condition or course of treatment or to help you take part in activities outside your home.

Palliative Care Care that you receive if you have an advanced, progressive illness for which there is no cure. The aim is to manage pain and other symptoms and to help you have best quality of life you can. It may be provided in your home or in a hospital or hospice.

Personal Assistant Someone you choose and employ to provide the support you need, in the way that suits you best. This may include cooking, cleaning, help with personal care such as washing and dressing, and other things such as getting out and about in your community. Your personal assistant can be paid through direct payments or a personal budget.

Personal Care Help with personal matters such as eating, drinking, washing, going to the toilet, getting up, getting dressed, going to bed, taking medicines and other things.

Flexible & cost effective Occupational Health • Doctor & Nurse Reviews • Counselling • Vaccinations • Blood Samples • Drugs & Alcohol Screening • Fitness to Work Medicals • Hearing Tests • Lung Function Tests • OGUK • ENG1

• Asbestos • Ionising Radiation • Blood Lead • Specialist Driver • Aviation • Commercial Diving • Pre Placement • Periodic • Breathing Apparatus • Confined Space

OH Services United House, King George Dock Hull HU9 5PR Tel: 01482 712113 Email: ohsnurseshull@oh-services.co.uk Web: www.ohservices.co.uk

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A-Z Social Care Jargon Buster Property Disregard

Rights

When your home does not have to be sold to pay for residential care.

What you are entitled to receive, and how you should be treated, as a citizen. If you have a disability or mental health problem, are an older person or act as a carer for someone else, you have the right to have your needs assessed by your local council.

This applies if you are in a care home for a short time, and expect to go back to your own home. It also applies if you have moved permanently into a care home, and the house you own is lived in by your partner, a relative who is over 60, or a child under the age of 16 who you are responsible for. There is also a 12-week property disregard, when the council will not charge you - based on the value of your home - for the first 12 weeks that you are in a care home. You would still have to make a contribution to the cost of the care home based on your income or available capital.

Quality of Life Your satisfaction with your life in terms of wellbeing and happiness. The way you define your own quality of life will depend on the things that matter most to you as an individual and make your life enjoyable and meaningful.

The care and support you receive should make a positive difference to your quality of life.

Referral A request for an assessment of a person’s needs, or for support from a social care organisation.

A referral to adult social care may be made by your GP, another health professional or anyone else who supports you. You can also refer yourself, or a member of your family, by contacting the adult social care department at your local council.

Replacement Care Care that replaces the care you normally receive from a regular carer, or would normally give to the person you care for. It may be needed either on a planned basis or in an emergency. Replacement care may be offered by your council, if the person needing care has had an assessment and is entitled to care and support services, or if the carer is entitled to help. Otherwise, you may have to pay for it.

Respite Care A service giving carers a break, by providing short-term care for the person with care needs in their own home or in a residential setting. It can mean a few hours during the day or evening, ‘night sitting’, or a longerterm break.

It can also benefit the person with care needs by giving them the chance to try new activities and meet new people.

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You have a right to a service or direct payment if your assessment puts you above the eligibility threshold your council is using. You and your carers have a right to be consulted about your assessment and about any changes in the services you receive.

Risk Assessment An assessment of your health, safety, wellbeing and ability to manage your essential daily routines. You might also hear the term risk enablement, which means finding a way of managing any risks effectively so that you can still do the things you want to do.

Safeguarding The process of ensuring that adults at risk are not being abused, neglected or exploited, and ensuring that people who are deemed ‘unsuitable’ do not work with them.

If you believe that you or someone you know is being abused, you should let the adult social care department at your local council know. They should carry out an investigation and put a protection plan in place if abuse is happening. Councils have a duty to work with other organisations to protect adults from abuse and neglect.

Sensory Impairment When one of your senses - sight, hearing, smell, touch, taste - does not work properly. It does not necessarily mean a total loss of one or more of your senses. You may be born with a sensory impairment, or develop it later in life.

Short Breaks When a person with care and support needs spends regular short periods of time away from their main carer, in order to give the carer a break and to give the person with needs a chance to do something different.

These breaks may take place in the person’s own home, in the home of an approved carer or in a place such as a hospice. Councils in England are required to provide short breaks services for children and young people with disabilities.

Signposting Pointing people in the direction of information that they should find useful. Your local council should signpost you towards information about social care and benefits through its helpline or call centre (if it has one), website and through local services such as libraries and health centres.

Substance Misuse

Virtual Budget

Regularly consuming quantities of substances such as drugs or alcohol that affect your mental and physical health and your ability to do the things you need to do.

When your council allocates an amount of money to you as a personal budget, you can take this either as cash through a direct payment or as a virtual budget (also known as a managed budget). If you take it as a virtual budget, the council manages the money for you to arrange the services you choose, and you aren’t responsible for paying directly for the services you receive.

Third Party Top-up If you are moving into a care home funded by the council, and you want to move into a home that costs more than the council believes is necessary to meet your needs, you will be able to move there if someone (a ‘third party’) agrees to pay the difference.

The third party may be a relative, friend or charity, and they will need to have a contract with the council confirming the arrangement.

Transition

The process by which young people with health or social care needs move from children’s services to adult services. It should be carefully planned, so that there are no gaps in the care young people receive. Young people and their families should be fully involved in the planning process.

Universal Services Services such as transport, leisure, health and education that should be available to everyone in a local area and are not dependent on assessment or eligibility.

Vulnerable Adult An adult who may need care and support because of their age, disability or illness, and may be unable to protect themselves from harm, neglect or abuse.

Wellbeing Being in a position where you have good physical and mental health, control over your day-to-day life, good relationships, enough money, and the opportunity to take part in the activities that interest you.

Young Carer A young person aged 18 or under who looks after, or helps look after, a family member or friend who has an illness, disability or drug or alcohol problem. They may be responsible for cooking, cleaning, shopping, personal care or emotional support.

Editorial courtesy of Think Local Act Personal www.thinklocalactpersonal.org.uk

Delbrook House Residential care and support

Residential care and support for vulnerable young adults with a learning disability Delbrook House strives to maintain a family-style environment where the residents’ comfort and happiness is of paramount importance • You will be treated with dignity and respect at all times.

• Your right to privacy and freedom of choice will always be upheld.

• You will be actively encouraged and supported to reach your own level of independence.

• You will be given carefully monitored, highly personalised support whenever you require it.

• Your cultural and emotional needs will be respected.

• You will be a welcome part of a very caring and happy environment.

You will be at HOME…

Rosemary Kay

Registered Manager

Tel: 01482 343463 www.delbrookhouse.co.uk

Delbrook House CQC overall rating

Good 27th October 2015

Delbrook House | 21-23 Marlborough Avenue | Princess Avenue | Hull | East Yorkshire | HU5 3JP 12

Your Health - Hull Information about health services in Hull, including out of hours and urgent medical treatment, where to go for minor injuries and how to access mental health services.

Finding an NHS service Out of hours GP service To find a local service, including hospitals, GPs, dentists, opticians and minor injuries units, visit www.nhs.uk and use the postcode search facility.

NHS 111 If you need medical advice fast, but it isn’t an emergency, call NHS ‘111’ from landlines or mobiles for free, 24 hours a day - 365 days a year. The trained advisors will ask a number of questions and can provide health information, offer reassurance and advice on what to do next, or advise which NHS service to use based on your circumstances.

Mental health services If you, or someone you know, is feeling anxious, worried or depressed you can contact Let’s Talk for help and support. If you are over 18 you can refer yourself and receive an assessment from a trained specialist who will help you access the best service for your needs.

Book an assessment 24 hours a day, 7 days a week by calling 01482 247111, text TALK to 61825 or visit www.letstalkhull.co.uk. For Child and Adolescent Mental Health Services (CAMHS) call Contact Point.

Contact Point is the clinically staffed single point of access for families, carers and professionals working in health, social care or education who are worried about the mental health of a young person under 18. Young people aged 16 and over can also refer themselves.

Contact Point is available from 8am until 6pm, Monday to Friday via 01482 303688.

Visit www.humber.nhs.uk/camhs for more information on CAMHS.

Minor Injuries Units Minor Injuries Units (MIU) can be a quick alternative to A&E for patients over 18 months old. Visit one of the city’s MIUs for injuries such as burns and scalds, insects bites and stings, cuts and sprains. It is not necessary to live locally or to make an appointment; you can simply walk-in.

There are two Minor Injuries Units in Hull located at: Bransholme Minor Injuries Unit Goodhart Road, Hull HU7 4DW Tel: 01482 344665 - Open 9am - 8pm seven days a week The Freedom Centre Preston Road, Hull HU9 3QB Tel: 01482 344580 - Open 9am - 5pm Monday to Friday

GP Walk-in centres Walk-in centres are open 365 days a year from 8am8pm and can treat both registered and non-registered patients without an appointment.

Story Street Medical Practice and Walk-in Centre Wilberforce Health Centre 6-10 Story Street, Hull HU1 3SA Tel: 01482 335180 13

The out of hours GP service operates between 6.30pm and 8am week days and 24 hours a day over weekends and bank holidays, for medical emergencies which cannot wait until the next working day for treatment.

Call 111, free from landlines or mobiles, to access an out of hours clinician.

Accident and emergency department (A&E) Visiting the accident and emergency department, Hull Royal Infirmary, should only be considered in emergencies and life-threatening situations which could include: loss of consciousness, fits, chest pain, breathing difficulties and severe bleeding. If you require emergency treatment call 999 or visit the emergency department immediately.

Hull Royal Infirmary Anlaby Road , Hull, HU3 2JZ Tel: 01482 875875 www.hey.nhs.uk

Minor Ailments Scheme There are a number of pharmacies in Hull where you can use the Minor Ailments Scheme without an appointment and without having visited your GP first. If you don’t currently pay for your prescriptions and you are registered with a GP in Hull you may e able to receive medicines free of charge without an appointment with your doctor. Ask at your local pharmacy or chemist to find out more.

Dental services Details of dentist who are able to treat new NHS patients are available by calling 01482 335409 and selecting option 1. A recorded message will list details of all available dentists for you to contact independently. If you require emergency dental treatment the Dental our of hours service can be accessed via NHS 111.

Sexual health services For information about sexual health issues, emergency contraception, STI testing and supplies of contraceptives you can use the ‘drop in’ services at the following locations across the city: Conifer Wilberforce Health Centre 6-10 Story Street, Hull HU1 3SA Tel: 01482 336336 The Warren 47-49 Queens Dock Avenue, Hull HU1 3DR Tel: 01482 221416 Please call services in advance for further information on specific services offered and clinic times.

Visit www.conifersexhealth.co.uk for more information and free online sexual health advice.

Managing pain There are two community pain management providers in Hull, which have pain nurses physiotherapists and consultants to help manage your pain and help prevent you having to go into hospital. If you are experiencing pain you can speak to your GP. Healthshare Hull is a one-stop service for all joint and muscle problems including back and neck pain. They have the full range of therapists and specialists to make sure you get the right help when you need it. You can contact Healthshare Hull directly to discuss your needs.

Tel: 01482 300003 www.healthsharehull.org.uk

Support for healthy lifestyles There are a number of services available in Hull for support to live a healthy lifestyle; including weight loss and management and stopping smoking. For access to exercise and leisure centres contact Active Hull on 01482 331643 or visit the website www.activehull.co.uk For the most up to date information visit the following websites: www.hullccg.nhs.uk www.facebook.com/healthylifestyleshull

Domestic violence Domestic violence can happen to a man or a woman and can be physical, sexual, psychological or financial abuse. If you are being abused there are three initial steps you can take: Recognise that it is happening to you - domestic violence is a pattern of behaviour. Some abusers are sorry for their actions and persuade their partners that the abuse won’t happen again, but the violence usually gets worse.

Accept that you are not to blame - it is not easy to accept that a loved one can behave so aggressively ad because you can’t explain your partner’s behaviours, you may assume that you are to blame. You are not. It is your abuser’s behaviour that needs to change. There is no excuse.

Get help and support - the most important thing you can do is to tell someone you can trust. Never be afraid to ask for help and remember in an emergency call 999.

You do not have to suffer alone.

If you are being abused and need advice or support contact the Hull Domestic Abuse Partnership on 01482 318759 or visit www.hulldap.co.uk for more information.

Help with alcohol an drug problems If you would like help, advice, support or treatment for your own or someone else’s alcohol or drug problems you can contact ReNew Community. ReNew Community is an integrated drug and alcohol service for adults who are Hull residents, providing support for people who may have an alcohol or drug issue.

You can also contact the service if you are worried about someone else’s drug or alcohol problem.

Individuals can self-refer to ReNew Community by calling 0800 161 5700 or emailing the service on: earlyhelp@hullrenew.org.uk

Patient Relations Service NHS Hull Clinical Commissioning Group (CCG) welcomes feedback from patients, families and carers.

If you have a complaint about a service, it is advised you contact the service directly in the first instance to make a complaint. If you would like to raise a complaint, concern or provide a compliment about a service which we commission, you can do so through our Patient Relations Service. The NHS Hull CCG Patients Relations Service can be contacted at the following: Patient Relations Health House, Grange Park Lane, Willerby East Yorkshire HU10 6DT Tel: 01482 335409 Email: HullGGC.Pals@nhs.net

NHS Hull Clinical Commissioning Group Tel (switchboard): 01482 344700 Email: HULLCCG.contactus@nhs.net Website: www.hullccg.nhs.uk Twitter: @NHSHullCCG

Mobility Aids Service can provide Wheelchairs and Commodes on a short term basis.

(This can be extended in exceptional circumstances).

No deposit required but a donation on completion of the loan period helps keep the service going, reaching people in crisis wherever they may be.

Contact 01709 870190 for further details The British Red Cross Society, incorporated by Royal Charter 1908, is a charity registered in England and Wales (220949) and Scotland (SC037738). Information correct at date of print

www.redcross.org.uk 14

Tell your GP you are a carer If they know you are a carer they will be able to offer advice and support.

Your GP practice has a dedicated person who can help you by providing information and advice on: • any medical conditions including treatments for the person you care for. This may help you feel more confident in your caring role • services provided by the NHS such as continence services and patient transport to hospital appointments • carrying out home visits to you or the person you care for if your caring responsibilities make it difficult to attend appointments at the surgery • arranging appointments for both you and the person you care for at the same time to avoid having to visit the surgery twice • arranging for repeat prescriptions to be delivered to your local pharmacy to save you picking them up • providing supporting letters and information to enable you and the person you care for to access services and welfare benefits.

Carers of people with serious/chronic health conditions or who are frail may also qualify for an annual flu vaccination.

Your GP will also be aware of your caring responsibilities should you need treatment or hospitalisation.

Changing a GP You can change your GP at any time you wish without having to give a reason.

If you tell your local Clinical Commissioning Group (CCG) that you want to change your GP, they must give you details of how to do so and provide you with a list of alternative GPs.

A good GP practice should provide the following to all patients: • A professional and helpful team of GPs, practice staff and other healthcare professionals.

• A practice that is accessible to everyone and provides a comfortable and organised environment.

• A flexible and efficient appointment booking system.

• Assurance of systems to monitor and improve the safety and quality of care.

• Appropriate, respectful and legal management of patient information.

• A private consultation room that provides reassurance and builds a patient’s confidence and trust.

• A referral or ongoing treatment process that is clear and well managed.

• Access to a wide range of healthcare services to help address local health needs and inequalities.

• An open and welcoming patient feedback policy with services continually improved or enhanced as a result of the feedback given.

• Opportunities for patients to get involved and have their say.

Cancelling and missing appointments Please always try to let the GP practice know when you are unable to attend an appointment. It is your responsibility as a patient to cancel any appointment you have made in reasonable time so that another patient can benefit from the appointment slot.

Making an appointment Be polite to receptionists. They are busy people who often have to deal with unhappy patients. Being polite to them will encourage them to help you.

Managing medicines - ask your Pharmacist Managing medicines for someone you look after can be a challenge, particularly if they are taking several different types.

Although the person you care for may appreciate your support with their medicines, bear in mind that they have a right to confidentiality. It’s up to them to decide how much of their health and medicines information is available to you as their carer If the person you care for has a complicated medication regime with different pills taken at different times of the day, you can ask your pharmacist to provide them in dosette boxes. These are plastic boxes with small compartments that show clearly which pills need to be taken at what time of day.

Instructions for when and how to give medication should be clear. If you are experiencing any problems, ask a doctor, nurse or pharmacist to explain. It’s important to give medicines at the recommended time of day. Not doing this can make them less effective. You also need to know whether or not the medicines should be taken with food or in between meals.

If your life is affected by dementia We are here to support you Telephone: 01482 211255 15

Ask for a medicines use review If the person you are caring for is taking more than one medicine and has a long-term condition, such as arthritis or diabetes, they should be able to get a free medicines use review with their pharmacist

Keeping medicines organised Make sure medicines are all kept in one place in the home, preferably in a cupboard or drawer that can be locked. This is particularly important if children live in or visit the house. You’ll also need to ensure repeat prescriptions are dispensed in time so the person you’re looking after doesn’t run out of medication.

• Be aware that if a dose of the medicine is missed, it may not be safe to take a larger amount later on.

• Return any surplus medicines to the pharmacist for safe disposal.

•

Never give medication to someone without their consent or try to force them to take it. People have the right to refuse medication. It’s not safe to crush tablets, or open capsules and mix them with food or drink

Don’t forget most pharmacies offer a wide range of services including: • Stop smoking service

If you find you are spending a lot of time fetching prescriptions from the GP and picking up medicines from the pharmacy, ask the GP surgery if they can send prescriptions directly to the pharmacy. Some pharmacists also offer home delivery services for people who find it difficult to get out of the house.

• Weight management

Medicines safety for carers

• Alcohol advice service

There are a number of things you and the person you’re looking after can do to make taking medicines safer:

• Sexual health advice

• Blood pressure checks • Flu vaccination service • Medicine check ups

• Be aware over-the-counter medication shouldn’t be taken with prescribed medicines unless a doctor or pharmacist has confirmed it’s safe to do so.

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GPs & GP Surgeries

GPs & GP Surgeries

Address

Data correct with NHS Choices

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Area

Postcode

Telephone

GPs & GP Surgeries

GPs & GP Surgeries

Address

Area

Postcode

Telephone

Data correct with NHS Choices

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Pharmacies

Pharmacy

Address

Area

Data correct with NHS Choices

Late Night Pharmacies in Bold

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Postcode

Telephone

Pharmacies

Pharmacy

Address

Area

Postcode

Telephone

Data correct with NHS Choices

Late Night Pharmacies in Bold

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NHS Hospital services Hospital services fall under secondary care and with the exception of emergency care you’ll need a referral to access treatment.

In England, hospital services are commissioned by clinical commissioning groups (CCGs). Hospitals themselves are mostly managed by NHS trusts, which ensure high-quality care is provided and that money is spent efficiently

Choosing a hospital or consultant If you are referred to a specialist, you have the right to choose which hospital or clinic to go to for your inpatient /outpatient appointments. You are also able to choose which consultant-led team will be in charge of your treatment, as long as that team provides the treatment you require.

Therefore, if you wish to be treated by a particular consultant for a procedure, you can choose to have your inpatient/outpatient appointments at the hospital where the consultant works, and to be treated by that consultant’s team – but this doesn’t necessarily mean you’ll be seen by the consultant themselves.

Photo: © Patrick Harrison

This choice is a legal right, if you are not offered a choice at the point of referral, ask your doctor why and say that you wish to go through your options. If you are still not offered, or refused, a choice, contact your local CCG. If you still don’t get a choice, you can complain to the Parliamentary and Health Service Ombudsman.

Help brighten her day

Access to NHS specialist treatment is via your GP and is based on need. You will need to see your GP if you wish to be referred to a specialist in a particular field If you ask your GP to refer you to a specialist, they will probably suggest that you try various tests or treatment options first to see whether your condition improves. You cannot usually self-refer to an NHS specialist, except when accessing sexual health clinics or treatment in an accident and emergency (A&E) department. A specialist will only see you with a referral letter from your GP. The letter will give the specialist essential background information.

If you wish to see a private specialist, you are still advised to get a referral letter from your GP. However, if you see a private specialist without a GP referral, your GP is not obliged to accept the specialist’s recommendations.

Emergency treatment If you have chest pains and heart disease is suspected, you should be seen at a specialist (or rapid access) chest pain clinic within two weeks of being referred.

What we provide

Cancer When cancer is suspected, you have the right to be seen by a specialist within two weeks from your referral date. Most people referred like this don’t have cancer, but it’s important to see a specialist as soon as possible, so that a cancer diagnosis can be confirmed or excluded.

Visit at home, provide support to rebuild confidence and independence Help with essential light household chores Collect prescriptions and provide company on shopping trips The British Red Cross Support at Home Service provides short-term care and support in the home for people after an accident or illness, giving them the confidence to continue their daily lives.

Can you spare a few hours a week?

Contact Diane Dunhill: Tel 01482 499837 Email ddunhill@redcross.org.uk No experience necessary, full training is provided.

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GP Referrals

NHS Waiting Times

Sometimes people need help to regain their confidence following an illness or hospital stay.

The British Red Cross Society, incorporated by Royal Charter 1908, is a charity registered in England and Wales (220949) and Scotland (SC037738). Information correct at date of print

You do not have a legal right to choice if: • you need urgent or emergency treatment • you are serving in the armed forces • you are accessing maternity services • you are detained under the Mental Health Act • you are detained in or on temporary release from prison, in court, an immigration removal centre, or a secure children’s home • if you are referred to high security psychiatric services or drug and alcohol misuse services provided by local authorities

redcross.org.uk/volunteer

Non-emergency treatment For non-urgent matters, you have the right to start treatment within 18 weeks from the date your GP, dentist or other healthcare professional refers you (unless you want to wait longer or waiting longer is clinically right for you).

As well as deciding what health services a local community needs and providing funding for them, your local clinical commissioning group (CCG) is responsible for deciding whether or not which treatments are available on the NHS. If you think that you would benefit from a certain treatment, contact your GP or local CCG to check if it’s available on the NHS in your area.

Consent to treatment

For some procedures, including operations, you will be asked to sign a consent form. It’s up to you whether you give your consent for a treatment. So you can make an informed decision, you should ask as much about the treatment as possible before giving your consent Consent to treatment is the principle that a person must give permission before they receive any type of medical treatment, test or examination For consent to be valid, it must be voluntary and informed, and the person consenting must have the capacity to make the decision.

If the assessment determines you’ll need little or no care, this is called a minimal discharge. But if you need more specialised care after you leave hospital, your discharge or transfer procedure is referred to as a complex discharge.

If you need this type of care, you’ll receive a care plan detailing your health and social care needs. You should be fully involved in this process.

A care plan should include details of: • the treatment and support you’ll get when you’re discharged • who will be responsible for providing support, and how to contact them • when, and how often, support will be provided • how the support will be monitored and reviewed • the name of the person co-ordinating the care plan • who to contact if there’s an emergency or things don’t work as they should • information about any charges that will need to be paid (if applicable) You’ll also be given a letter for your GP, providing information about your treatment and future care needs. Give this letter to your GP as soon as possible.

Photo: © Nick Strugnell (UNP) British Red Cross

These terms are explained below: Voluntary – the decision to either consent or not to consent to treatment must be made by the person themselves, and must not be influenced by pressure from medical staff, friends or family.

Informed – the person must be given all of the information in terms of what the treatment involves, including the benefits and risks, whether there are reasonable alternative treatments and what will happen if treatment doesn’t go ahead.

Capacity – the person must be capable of giving consent, which means they understand the information given to them, and they can use it to make an informed decision.

If you need help putting your views across, an independent advocate may be able to help

If an adult has the capacity to make a voluntary and informed decision to consent to or refuse a particular treatment, their decision must be respected. This is still the case even if refusing treatment would result in their death, or the death of their unborn child.

If a person doesn’t have the capacity to make a decision about their treatment, the healthcare professionals treating them can go ahead and give treatment if they believe it’s in the person’s best interests.

However, the clinicians must take reasonable steps to seek advice from the patient’s friends or relatives before making these decisions

Being discharged from hospital Once you are admitted to hospital, your treatment plan, including details for discharge or transfer, is developed and discussed with you. A discharge assessment will determine whether you need more care after you leave the hospital.

You should be fully involved in the assessment process.

With your permission, family or carers will also be kept informed and given the opportunity to contribute.

COULD YOUR PATIENT USE A LITTLE EXTRA HELP GETTING HOME? The British Red Cross provides transportation and short-term care and support in the home after a stay in hospital, giving people the confidence to continue with their daily lives.

The Assisted Discharge Service offers support from Hull Royal Infirmary, for those who live within the Hull area.

Referrals are made by health professionals within the hospital setting and are subject to our criteria requirements.

If you would like to become a volunteer for our service you can contact us directly.

To find out more call us on 07739 863039 The British Red Cross Society, incorporated by Royal Charter 1908, is a charity registered in England and Wales (220949) and Scotland (SC037738). Information correct at date of print

www.redcross.org.uk 22

NHS continuing healthcare funding Are you eligible for NHS continuing healthcare funding?

It’s usually carried out in hospital or at home by a nurse, doctor, social worker or other healthcare professional.

If you have a disability or complex medical problem, you might qualify for free NHS continuing healthcare (CHC). Not many people know about it, so it’s important to find out if you’re eligible and get an assessment

They’ll assess your general health and care needs with a simple checklist that will cover:  behaviour  cognition (everyday understanding of what’s going on around you)  communication  psychological and emotional needs  mobility  nutrition (food and drink)  continence  skin (including wounds and ulcers)  breathing  symptom control through drug therapies and medication  altered states of consciousness  other significant care needs

If you need a lot of nursing support, the NHS can fund your care for you. NHS continuing healthcare (adults) or NHS continuing care (children) helps you with healthcare needs resulting from disability, accident or illness. If you qualify, it should meet the full cost of your care including care at home, in a nursing home or hospice.

In England, the NHS can arrange care for you or you can choose to receive funding for your care as a direct payment, known as a personal health budget

Who is eligible?

The only sure way to know if you’re eligible is to ask your GP or social worker to arrange an assessment.

There’s no clear-cut list of health conditions or illnesses that qualify for funding.

Most people with long-term care needs don’t qualify for NHS continuing healthcare or NHS continuing care because the assessment is quite strict. Being frail, for example, isn’t enough. But don’t let that put you off.

Free healthcare could be worth thousands of pounds each year, so it’s important to find out where you stand.

What are eligible health needs?  complex medical conditions that need additional care and support  long-term medical conditions  physical or mental disabilities  terminal illnesses  rapidly deteriorating health  mobility problems  behavioural or cognitive disorders

What costs are covered?

NHS continuing healthcare or continuing care covers personal care and healthcare costs, such as paying for specialist therapy or help with bathing or dressing.  It may also include accommodation if your care is provided in a care home, or support for carers if you’re being looked after at home.  If you need nursing care as an adult, you might get NHS funded nursing care. You might get this even if you don’t qualify for NHS continuing healthcare or NHS continuing care.

Funding varies by region, so you’ll need to check with your local Clinical Commissioning Group.

First of all, you’ll have an initial screening to see if you’re eligible for funding.

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If your health, or the health of someone you care for, is getting worse rapidly, ask about a fast track assessment to bypass the initial screening.

The assessment If the initial screening shows that you may be able to get free NHS Continuing Care, you’ll need to have another assessment.

Even though the assessment process can be complex, most people and families who’ve been through it say the benefits are worth it.

The Assessment team will mark each of your care needs as:  priority  severe  high  moderate  low If you have at least one priority need or two severe needs, you should qualify for funding.

If you have one severe need and a number of other high or moderate needs, you may also be eligible.

Circumstances change, so even if you were turned down for funding at first, make sure you have your situation regularly reviewed. Your GP or Local Carers Centre can help you.

What is a personal health budget?

Personal health budgets are being introduced by the NHS to help people manage their care in a way that suits them.

Since October 2014, adults receiving NHS Continuing Healthcare and children in receipt of continuing care have had a right to have a personal health budget.

A personal health budget is an amount of money to support your identified health and wellbeing needs, planned and agreed between you and your local NHS team. The aim is to give people with long-term conditions and disabilities greater choice and control over the healthcare and support they receive.

Key points  Personal health budgets should help people get a more personalised service from the NHS. They should not make things worse.  You do not have to have a personal health budget if you do not want one.  They enable you to have more choice and control over the care you receive.  NHS and social care organisations should work in partnership with you and with each other.  If you are not able to have a personal health budget, you can still speak to your NHS team about how your needs can be met in another way that is more personal to you.

cascade

Personal health budgets for people with learning disabilities Personal health budgets offer a real opportunity to enable people with learning disabilities to live in their own homes or with their families, rather than in institutions. Across England the NHS has already begun to offer personal health budgets and joint health and social care budgets to people with learning disabilities who have complex health needs or challenging behaviour.

People with learning disabilities eligible for NHS Continuing Healthcare now have a right to have a personal health budget. Anyone else whose support is funded by the NHS, including those with jointly funded packages could also benefit.

From April 2015, all CCGs are being asked to develop plans for a major expansion of personal health budgets, and to ensure that people with learning disabilities are included by April 2016.

NHS Hull Clinical Commissioning Group 2nd Floor, Wilberforce Court Alfred Gelder Street, Hull HU1 1UY Telephone: 01482 344700 www.hullccg.nhs.uk

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• Provide support to people with autism and other complex needs to live independently as possible, in residential care or their own home • Deliver activities and events to support individuals and their families • Help people with all types of challenging behaviour to receive education and training programmes ... and much more • Raise self esteem and confidence • Promote respect and dignity for self and others Cascade Living Solutions Limited Latest CQC inspection report • Ensure involvement in the wider community

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Short Breaks 24

Recognising mental health and support Mental health, emotional wellbeing and resilience is all about how we cope with what life throws at us. It concerns the way we feel about ourselves, conduct relationships, handle stress or deal with loss.

Good mental health and resilience are fundamental to good physical health, relationships, education and work, as well as being key to achieving our potential.

Mental health facts At least one in four people experience a diagnosable mental health problem in any one year, and one in six experiences this at any one time.

• More than half of those with a common mental health problem have both depression and anxiety.

• There are approximately 570,000 people with dementia in England, a figure that could double in the next 30 years.

•

Nearly 850,000 children and young people aged five to 16 years have a mental health problem – about 10% of the population. Fewer than one in 10 accesses treatment.

Common mental health problems such as anxiety, depression, panic disorders, phobias and obsessive compulsive disorder can cause great emotional distress, and can affect how you cope with day-to-day life and your ability to work.

Less common conditions, such as psychosis, can make you experience changes in thinking and perception severe enough to significantly alter your experience of reality. These conditions include schizophrenia and affective psychosis, such as bipolar disorder, and can have the same lifelong impact as any long-term physical condition.

Admitting you are struggling does not mean you are “mentally ill”, that doctors will automatically put you on medication, or you will have to immediately tell your employer you are mentally unwell.

Many issues can be managed without the help of a GP by using the variety of sources of help now available, whether it’s through books, local organisations or online.

Even if you need professional help, there are choices you can make along the way. Mental illness is treatable and, with appropriate support and treatment, people do recover. Many move on with their lives and are able to care for their family, contribute to the local community, and get back into employment or training.

Mental health & wellbeing for carers Coping with stress Stress, anxiety and depression can affect anyone, but the pressure and expectations of caring can make carers particularly vulnerable. In turn this can make caring more difficult to cope with.

Stress can affect your sleep and you can become more exhausted, tense, irritable and low. You can also feel as though you are losing control of your life and you have little way of regaining this control. One of the first steps in dealing with stress is to acknowledge that it is happening and to think about the reasons. Starting to deal with the causes, even by taking very small steps, helps you feel more in control. The earlier you do this the better. Just talking about how you feel with someone can help you find a way to deal with it.

Joining a carers group could offer you the opportunity to share your experiences with other carers. Or you may prefer to use carers online forums such as those offered

by Carers Trust and Carers UK.

Dealing with depression Depression is when your feel persistently low or sad and can’t find any pleasure in life for weeks and months rather than just a few days. Many of us feel like this sometimes, but depression is when these feelings last longer than a few days.

Depression is an illness, with real and sometimes frightening symptoms. It’s not a sign of weakness or something you can ‘snap out of’ or deal with by ‘pulling yourself together’.

A Beginner's Guide to

Lifting Depression

Two approaches which you are unlikely to find elsewhere.

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Leading the way to a better quality of life for everyone affected by severe mental illness.

Tel: 0300 5000 927

The line is open from 9:30am - 4pm Monday to Friday.

www.rethink.org

If you think you may be suffering from depression you should see your GP as soon as possible. Many people wait a long time before seeking help for depression from their GP.

Keeping healthy

The treatment and support options for depression are very effective and the sooner you get help the sooner you can be on the way to recovery.

Keeping active

Keeping in touch and meeting people Carers can sometimes feel lonely or socially isolated as a result of their caring responsibilities, which in turn impacts on their health.

You may have found that caring has affected the relationship you have with the person you care for, as well as relationships you have with others.

Whilst caring responsibilities can make it difficult, it is important that you try to keep up your social connections as these are good for maintaining your own wellbeing. This may include keeping in touch with family and friends – even if it’s just a quick phone call, joining online carer networks or visiting your local carers’ service. It may also include taking a little time out to engage in any hobbies you have and doing the things that make you happy.

If you find that you don’t have any time to do the things you enjoy, then it is important to find ways to take a break from your caring role.

Acknowledging resentment and guilt Like many carers, you may find yourself caught up in a cycle of resentment and guilt. You may no longer feel like your life is your own and may feel guilty for feeling that way. At the same time, you may feel that you should be doing more for the person you care for, or feel as though you aren’t doing a good job.

There are simple steps you can take to ensure that your body and brain remain as healthy as possible as you age.

It’s never too late to get active. Any physical activity for ten or more minutes that is of at least moderate intensity (i.e. raises your breathing rate) is beneficial to health.

Eating well and maintaining a healthy weight Choose a variety of foods high in fibre, vitamins and minerals, like fruit, vegetables and wholegrains. Try to have fewer foods and drinks that are high in fat, salt and sugars.

Keeping alcohol consumption low Regularly drinking more than the recommended guidelines can damage your health.

Stopping smoking To quit, visit www.nhs.uk/smokefree, or call the smokefree helpline on 0300 123 1044.

How your GP can help You should make an appointment to see your GP if you’ve been feeling depressed for a few weeks or your anxiety is having an impact on your daily life, such as stopping you from going to work or shopping.

Mental health services are free on the NHS, but you will usually need a referral from your GP to access them.

It’s important that you allow yourself to feel these perfectly normal feelings and not get overwhelmed by guilt. It is also important to try to find time to take care of your health and wellbeing, rest and re-energise, which may help you cope with some of these feelings.

A Beginner's Guide to

ME / CFS Information on child and adolescent mental health.

Services for parents and professionals.

Tel: Parents' helpline: 0808 802 5544 The line is open from 9:30am - 4pm Monday to Friday.

www.youngminds.org.uk

The Beginner's Guide is based on the advice of the leading original authority.

Dr Melvin Ramsay

To order your copy visit our website:

www.nancyblakealternatives.com 26

Taking a break from caring If you provide care for a relative, friend or neighbour, there will be times when you need to take a break: to attend appointments or simply to take time out.

Being a carer can be very demanding, taking up a lot of emotional and physical energy. Carers often feel worried or guilty about taking time off. But taking breaks from caring is very important, for both the carer and the person being cared for.

It is important not to let your caring role take over your life. Ideally, you should find a balance between caring and looking after yourself, particularly if you have other commitments, such as your own home, family or a job. It is important to look after your own health too.

You will be able to provide better care if you are not exhausted and run down.

For your relative: respite care can also have positive benefits for the person being cared for. In some cases it can provide specialist medical care that you are unable to provide – for example, to help them recover from an operation or illness. Attending a day centre or going on a ‘respite holiday’ can be enjoyable, giving your relative the opportunity to meet new people and take part in different activities.

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Planning ahead for respite care Remember that the need for respite care can occur suddenly, so there won’t always be lots of time to research and make decisions. So, it is worth checking what’s available in the area, before you need help. You might want to make a list of local agencies who can provide care at short notice or local care homes that offer respite care

Checklist for considerations when choosing respite care If you are choosing respite care, there are some things you should do before making a decision on the provider.

Ensure you make decisions jointly: any decisions about respite care should be made with your relative, wherever possible. Talk to them about their preferences and discuss the options. Explain why the respite care is needed and what is involved.

Specific needs: make sure that any day centres or respite care can accommodate your relative’s needs.

For example, if your relative is in a wheelchair, make sure that the chosen day centre is accessible. Or, if your relative has dementia, make sure that any staff employed to take care of them have the necessary experience and training to deal with this.

Consider your relative’s interests: if you are trying to arrange day care or a short break for your relative, talk together about what they would enjoy. Try to match clubs to their hobbies and interests.

Visit potential respite providers: before making any decisions, try to visit the day centres or care homes on your shortlist to get an idea of what they are like.

If possible, take your relative with you and make sure they understand what is going on. If you are arranging emergency respite care, there may not always be time to visit.

Check the room: if you are considering residential respite care, ask to take a look at the particular room your relative might stay in as well as any communal areas.

Background checks: make a background check by checking the Care Quality Commission (or relevant regulatory body in your country) for information about the care provider Meet prospective carers: if possible, try to meet any carers that might provide care while you are away.

Make sure that you and your relative are happy with them Respite care can have positive benefits for both you and your relative. But there are potential difficulties that need to be considered The benefits of respite care  A well-earned break for carers from the day-to-day responsibilities of caring.  Time for carers to focus on their children, jobs, home and personal health and wellbeing.  A holiday or a trip to a relative’s house can provide a welcome change of scenery for your relative, particularly if they are stuck at home most of the time.  Specialist care can be given to suit your relative’s needs.  Help with funding is available in many cases.  An opportunity to introduce alternative services or carers that may be needed in the future (for example, if the situation  deteriorates or an emergency occurs).

 There might be waiting lists for respite care.  Care homes may not have space to accommodate short-term stays, particularly at short notice.  Some benefits, such as carer’s allowance may be affected if you take breaks over a certain amount of time.  The person being cared for may reject alternative forms of care.  The person being cared for may become depressed or agitated if not being looked after by their usual carer.

When arranging residential or domiciliary respite care you should be given a contract stating the details of care and any other terms and conditions. This should include information about notice periods, cancellation clauses and (if applicable) bank holiday payments. It is important to read this carefully before signing. If you are not offered a written contract make sure you ask for one.

Financing respite care Local authorities will only pay for respite care for those that they have assessed as needing it. This can be determined by your relative having a needs assessment or you having a carer's assessment.

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The drawbacks of respite care  It can be difficult for carers to admit that they need or want time off.  It might be difficult for some people, particularly those with dementia/Alzheimer’s to deal with changes to routine. In some cases, it might be easier for them to remain at home, with a substitute carer, than to move somewhere else.  There may be additional respite care costs to consider that aren’t covered by local authority funding.  Availability for respite care may be limited in some areas.

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Dementia awareness People with dementia can feel vulnerable as their condition progresses and they increasingly rely on other people to do things for them. It is important that people who have dementia feel reassured and supported, while retaining some level of independence People with dementia live in your area, probably on your street, possibly amongst your friends and close neighbours. People with dementia may visit your shop, business or workplace.

Common signs of dementia are confusion, forgetfulness, struggling to find words and repetitiveness. This can make everyday situations stressful.

A person with dementia may need extra assistance to help them use your services or help them with everyday things.

Speak clearly • Speak clearly, calmly and slowly to allow the person time to understand information.

• Use simple, short sentences and avoid direct questions.

• Keep choices to a minimum and don’t raise your voice.

• Where possible, talk in a non-distracting place or find a quiet corner.

Think about your body language •

•

People with dementia may find it difficult to understand what is being said, but can be quick to interpret the message on people’s faces and may still be aware of body language.

Make sure you are at the person’s level, use a friendly tone and respect personal space.

Show respect and patience • Adapt what you are saying if the person with dementia does not understand.

• Don’t rush, and try to go at their pace.

Listen •

•

Listen carefully to what the person has to say, giving plenty of encouragement, whilst looking out for other clues of what they might be trying to communicate.

Allow them time to find the words to tell you what they want.

Noise • A person with dementia may have difficulty listening if there are a lot of different noises around them.

Lighting • Make sure the lighting is sufficient so the person with dementia can see you and everything around them clearly.

• Turn up the lights or move to a well-lit area.

Finding the way

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• People with dementia may have forgotten where things are or they may not recognise everyday objects.

• Sometimes people with dementia may forget where they are going or become disorientated.

• They may not be able to follow simple directions and may need you to go with them to where they want to go.

Feeling lost • Sometimes people with dementia may feel lost in familiar places or forget where they live.

Maintaining good health and nutrition • It's important that the person you care for has a healthy, balanced diet and gets some exercise.

• The longer they stay fit and healthy, the better their quality of life will be.

Recognising and finding things •

•

•

People with dementia may have forgotten what they came into the premises or room for.

They may have a list but have problems finding the things they want.

Help them choose the right amount of things, particularly if they seem to be buying an unusually large amount of something.

Making choices •

•

•

While choice is good, for someone with dementia too much choice can be confusing.

Ask what the person would like, e.g. a coffee, and then suggest two or three likely options.

You could describe these options and remember to give a pause between each option to allow them time to think and make a decision.

Whose reality •

•

Past memories can often be stronger than present reality.

The person may be confused and say something that does not makes sense to you.

Being predictable •

•

The person with dementia may be confused if things have been rearranged, or by new people they meet.

Try to keep things the same or offer additional assistance if things have changed.

Every day can be different • For some people with dementia what they can do changes from day to day, so how you help them may need to be different every time.

• Look out for signs and offer to help when needed, bearing in mind the privacy of the person.

Dealing with incontinence in someone with dementia A person with dementia may simply forget to go to the toilet, or may forget where the toilet is. They may also have lost the ability to tell when they need the toilet.

How you can help It’s important to be understanding, retain a sense of humour and remember that it’s not their fault. You may also want to try the following: • Put a sign on the toilet door, such as a photo of the toilet.

• Keep the toilet door open and make sure that the person you care for can access it easily.

• Make sure they can remove their clothes – some people with dementia can struggle with buttons and zips.

• Look out for signs that they may need to go to the toilet, such as fidgeting and standing up and down.

• Get adaptations to the toilet if necessary

Helping someone with dementia with their personal hygiene People with dementia can become anxious about certain aspects of personal hygiene and may need help with washing. For example, they may be scared of falling when getting out of the bath, or they may become disorientated in the shower. The person you care for may not want to be left alone or they may resist washing, because they find the lack of privacy undignified and embarrassing

Helping someone with dementia sleep well People with dementia often experience disturbed sleep.

They may wake up during the night or be restless. These problems may get worse as the illness progresses Some medication can cause sleepiness during the day and interfere with sleep at night. Sleeping pills can be used with care in people with dementia. However, “sleep hygiene” measures are best for people with dementia – for example, no naps during the day, regular bedtimes, and avoiding alcohol or caffeine at night.

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Caring for someone with challenging behaviour A person’s behaviour can be defined as “challenging” if it puts them or those around them (such as their carer) at risk, or leads to a poorer quality of life.

It can also impact on their ability to join in everyday activities. Challenging behaviour can include aggression, self-harm, destructiveness and disruptiveness.

Communication is the main way we interact and express our needs, likes and dislikes. If communication is a problem, it can be very frustrating for the person and may result in challenging behaviour. If this behaviour leads to a desired outcome, it may be repeated again and again.

It's important to remember that bad behaviour is not a result of bad parenting. There are, however, a number of things you can do to help, such as being consistent, patient, giving the person you care for regular exercise and remembering that punishment rarely works.

If you care for someone who displays challenging behaviour and you find it difficult to cope, support is available. It is particularly important that you seek support if you are experiencing harm from the person you care for (whether intentional or unintentional).

Challenging behaviour is often seen in people with conditions that affect communication and the brain, such as learning disabilities or dementia.

Many organisations for people with learning disabilities or dementia have strategies for coping with challenging behaviour.

What can you do to help?

Some of these organisations also provide opportunities for carers to connect with other people in a similar situation – for example, through family linking schemes.

Sharing your experiences – for example, with a local carers' group – can be a good way of getting support.

As a carer, try to understand why the person you look after is behaving in this way. For example, they might feel anxious or bored, or in pain.

If you can recognise the early warning signs, you may be able to prevent behavioural outbursts. For example, if being in a large group of people makes the person you care for feel anxious and they become agitated, you could arrange for them to be in a smaller group or have one-to-one support.

Some people find a distraction can focus a person's energies elsewhere and prevent them displaying challenging behaviour.

The person you care for might behave in a challenging way to get your attention. If this is the case, consider not responding directly to their behaviour – although you shouldn't ignore them completely. But if their behaviour puts them or someone else at risk, you'll need to intervene as calmly as possible.

Caring for someone with autism If you care for someone with autism, your main concern will be how best to support them. However, you will both benefit from getting help for yourself. There’s no denying that looking after someone with autism can be demanding, and it can put considerable strain on relationships.

Autism is an "unseen disability" – it's a condition that can be very disabling, but gives no outward physical signs.

This means that outside the home, parents and carers may have to deal with disapproval from people who don’t understand the way people with autism can act and behave.

This sort of reaction can make both the person with autism and their family carers unwilling to leave the home and it’s an issue that can lead to the whole family becoming socially isolated

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We will tailor bespoke care plans for people with:

Top Tips ...

Help and support for carers

Behaviour Diaries Completing a behaviour diary, which records what is occurring before, during and after the behaviour, could help you to understand its purpose. It is important to make notes on the environment, including who was there, any change in the environment and how the person was feeling. A diary may be completed over a couple of weeks or longer if needed Consistency Be consistent in your approach to the behaviour, and ask others around the person to use the same consistent approach.

Communication Speak clearly and precisely using short sentences. By limiting your communication, the person is less likely to feel overloaded by information and more likely to be able to process what you say. Support the person to communicate their wants, needs and physical pain or discomfort, eg by using visual supports.

Rewards Using rewards and motivators can help to encourage a particular behaviour. Even if the behaviour or task is very short, if it is followed by lots of praise and a reward, the person can learn that the behaviour is acceptable.

Relaxation Look at anger/emotions management and create opportunities for relaxation. You can do this by, for example, looking at bubble lamps, smelling essential oils, listening to music, massages, or swinging on a swing.

There are a number of ways in which you could get some support.

Meet up with other carers, or get support from, a local NAS branch or group, community service or family support service in your area.

Find local support groups and services listed in our Autism Services Directory: www.autism.org.uk Get ideas from other families, and share your tips with them on the Community discussion forum: http://community.autism.org.uk/ Call the NAS Parent to Parent line on: 0808 800 4106 a UK-wide confidential telephone service providing emotional support to parents and carers of children or adults with autism.

Its Important to take a break Because people with challenging behaviour have complex needs, parents and carers may find it difficult to entrust the person they care for to anyone else.

However, taking a break is really important for your own physical and emotional health.

Friends or family members will usually be willing to give you time off to do the things you enjoy – and they will also be the ones that the person with autism knows and trusts.

Challenging behaviour can often be diffused by an activity that releases energy or pent-up anger or anxiety.

This might be punching a punch bag, bouncing on a trampoline or running around the garden.

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Learning Disabilities - NHS Annual Health Check People with learning disabilities often have poorer physical and mental health than other people. This doesn’t need to be the case.

The Annual Health Check Scheme is for adults and young people aged 14 or above with learning disabilities who need more health support and who may otherwise have health conditions that go undetected.

People with learning disabilities often have difficulty in recognising illness, communicating their needs and using health services. Research shows that regular health checks for people with learning disabilities often uncover treatable health conditions. Most of these are simple to treat and make the person feel better, while sometimes serious illnesses such as cancer are found at an early stage when they can be treated.

The Annual Health Check is also a chance for the person to get used to going to their GP practice, which reduces their fear of going at other times.

Adults and young people aged 14 or above with learning disabilities who are known to their local authority social services, and who are registered with a GP who knows their medical history, should be invited by their GP practice to come for an Annual Health Check.

The Annual Health Check lets the person with learning disabilities go to their GP practice and have aspects of their health checked. It also allows them to talk about anything that is worrying them.

During the health check, the GP or practice nurse will carry out the following for the patient: • a general physical examination, including checking their weight, heart rate, blood pressure and taking blood and urine samples • assessing the patient’s behaviour, including asking questions about their lifestyle, and mental health • a check for epilepsy • a check on any prescribed medicines the patient is currently taking • a check on whether any chronic illnesses, such as asthma or diabetes, are being well managed • a review of any arrangements with other health professionals, such as physiotherapists or speech therapists •

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If the person’s learning disability has a specific cause, the GP or practice nurse will often do extra tests for particular health risks. For people with Down’s syndrome, for example, they may do a test to see whether their thyroid is working properly.

• The Annual Health Check may also be a good opportunity to review any transitional arrangements that takes place when the patient turns 18.

•

The GP or practice nurse will also provide the patient with any relevant health information, such as advice on healthy eating, exercise, contraception or stop smoking support.

People with learning disabilities have lots of different needs. Sometimes these are written down in a health profile or health action plan that the GP or nurse can refer to. Putting “reasonable adjustments” in place can help people to have a successful health check.

Reasonable adjustments mean changing services so they are easier to use.

These adjustments can include: • using pictures, large print, and straightforward language to help explain what is happening • booking longer appointments • scheduling an appointment that starts at the beginning or end of the day, so people don’t have to wait All parts of the health check are voluntary. Anyone who is having the health check, or their carer, can ask the GP or practice nurse for more information about the process. The patient can then give their consent before any tests or procedures are carried out

Getting a learning disability diagnosis Under the Children and Families Act 2014, social services has a duty to assess children in need, including children with disabilities.

The aim is to identify the child’s specific education and healthcare needs and draw up a plan of action for meeting these needs.

If you believe your child has an undiagnosed condition, your GP should be able to help you to get the advice you need Some learning disabilities are discovered at birth, while others are not diagnosed until much later. If your child is diagnosed at or around birth – for example, with Down’s syndrome – their doctors probably won’t be able to tell you exactly how it will affect their development. The extent of your child’s disability will become clearer as they reach the ages when they should be talking, walking or reading.

For children who are not diagnosed at birth, finding out they have a learning disability can take time. The main problem is that learning disabilities are quite hard to diagnose very early in life.

Most learning disabilities are obvious by the age of five.

Intellectual function (also known as cognitive ability) can only be assessed by testing children from the age of five, so most children with these disabilities are only diagnosed when they start school.

Even after a diagnosis is made, it can be hard to tell how it will affect your child in the future. However, your child’s current needs can be assessed to work out what kind of support will help them, and they will be referred to a paediatrician (a specialist in child health).

Learning disabilities A learning disability is a reduced intellectual ability and difficulty with everyday activities – for example household tasks, socialising or managing money – which affects someone for their whole life.

The level of support someone needs depends on the individual. For example, someone with a mild learning disability may only need support with things like getting a job. However, someone with a severe or profound learning disability may need full­time care and support with every aspect of their life – they may also have physical disabilities.

People with certain specific conditions can have a learning disability too. For example, people with Down’s syndrome and some people with autism have a learning disability.

It’s important to remember that with the right support, most people with a learning disability can lead independent lives.

Most adults with a learning disability want to live independently in the community, either by themselves or sharing a home with friends . Their Families and carers share this ambition.

People with a learning disability tend to take longer to learn and may need support to develop new skills, understand complicated information and interact with other people.

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Disability aids & equipment Get expert advice

Don’t forget to claim VAT relief

An occupational therapist or physiotherapist can advise you on whether a particular piece of disability equipment or adaptation is likely to meet your needs.

Many more retailers are now entering the market for disability aids and adaptations. The market is no longer restricted to specialist providers so be careful of buying products online as bigger products like wheelchairs and scooters will need some type of assembly

If you have a long-term illness or you’re disabled, you don’t have to pay VAT on equipment designed to help with daily living. The supplier needs to be registered for VAT and you have to sign a form declaring that you have a long-term illness or you’re disabled.

Buying locally can have some advantages. For example, you might not have to pay for delivery and if there’s a problem with the equipment when you get it home, it can be quicker and easier to resolve it face-to-face.

Alongside personal needs, you might want to consider some of the following: • Does the company you are buying from offer an ‘after-sales service’?

• Does the product come with a guarantee?

• Can you get hold of spare parts easily and cheaply?

• Does it need to be serviced regularly? Who will you use to do the work and how much will it cost?

• Does it comply with the necessary British Standards?

If it’s been tested and approved it will have the BSI (British Standards Institute) Kitemark.

• What is the company’s returns policy? Do they offer a buy-back guarantee if your needs change?

North Eastern CARE SHOP

FresePeeDrseolinvaelry rvice at &H unobmeeata Vis its ble Availparibcle es.

• Motability scooters • Powerchairs • Rise & recliner chairs • Stairlifts • Wheelchairs • Mobility & walking aids • Adjustable beds & accessories • Bathroom adaptions • Toileting & personal care • Incontinence specialists • Hoists & slings Free Delivery and Home Visits Available Call today for your FREE Brochure

01482 565626

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Buying second-hand disability equipment Buying second-hand can be cheaper, but always check that what you are buying is in good working order.

Second-hand items must be accurately described by whoever is selling them, including details of any faults. Some mainstream magazines and several disability organisations publish journals that contain Advertisements for second-hand equipment.

If you are buying second-hand from a private individual, you must make sure that: • the equipment has been regularly maintained; • that you also receive accompanying literature, for example a care manual; • that batteries have been regularly charged (usually once a month is sufficient if the equipment is not being used); and that you receive instructions on how to use the equipment properly and safely. You may also need to find a local company able to service the equipment and carry out future repairs.

Minor adaptations and equipment – what help is available?

Your local authority in England will normally provide you with disability equipment and small adaptations costing less than £1,000 free of charge, as long as you’ve been assessed as needing it and you are eligible

Complaining about care products When you buy something, the law gives you certain rights that protect you if it’s faulty or not fit for purpose – that includes equipment or aids to help with mobility or daily tasks. If your council arranged for and purchased a care product for you, report it to them and they should replace it.

If you bought a care product directly, go back to the retailer to ask for a refund or replacement. If you don’t get a satisfactory result, contact your local Citizens Advice Bureau for help in taking matters further.

If you bought a product or service with a credit card, and the retailer is being difficult, you may get help from your credit card provider. Contact them directly to see what they can do.

Mobility scooters

Did you Know ...

A mobility scooter is a medical device as well as a lifestyle choice. It’s important to get the right one - for example, with a tiller and controls you can operate if you have arthritic fingers. Otherwise you could waste money or buy a scooter that isn’t the safest or most comfortable. Take advice from a mobility shop or by contacting an occupational therapist before you make a final decision on what to buy.

Choosing a mobility scooter - top five things to consider

The Motability Scheme enables disabled people to lease a new car, mobility scooter or powered wheelchair. You may be eligible to join the Motability Scheme if you get certain disability benefits www.motability.co.uk The Blue Badge Scheme provides a range of parking benefits for disabled people who have difficulty walking. For example, you can park for free in pay-anddisplay bays and also on double and single yellow lines. www.gov.uk/apply-blue-badge Car tax exemption. If you’re getting certain disability benefits you are exempt from paying Vehicle Excise Duty (car tax, or road tax).If you’re on the Motability Scheme you don’t need to do anything. If you own your car you have to apply for the exemption. www.gov.uk/vehicle-exempt-from-vehicle-tax The Disabled Persons Railcard gives you a third off most rail fares. The discount is for two people – so you can save money for a friend or a carer too. You have to buy the railcard but it can pay for itself after just one journey. A Disabled Persons Railcard costs just £20 for a whole year www.disabledpersons-railcard.co.uk

 The types of journeys you plan to make  The types of terrain you’ll cover  Your storage facilities  Your body weight and size  Your budget

Choosing a wheelchair or scooter If you need a wheelchair, the main decisions you’ll have to make about your chair are: • whether it will be self-propelled, pushed by someone else, or electric-powered • for permanent or occasional use • for indoor or outdoor use • whether you need it to go in and out of a car There are pros and cons for each type of chair, so the choice depends on your needs. There are a large variety of wheelchairs and scooters available, so expert independent advice is essential. Some of the things to consider when choosing the right equipment are: Your physical ability - For example, if you’re unable to stand up, a scooter may be difficult to manage. Stability and balance may also affect what you can use.

How the equipment will be used - For example, do you need to get up stairs or through narrow doorways?

Practical considerations - such as access to a power point if the equipment needs to be charged up, or having a secure place to store the equipment when it’s not in use.

DRIFFIELD YOUR ROUTE TO INDEPENDENCE

FREEDOM TO DRIVE Vehicle Adaptations & Mobility Aids

Vist our showroom where our friendly staff are happy to help you find the right product and give free demonstrations

NHS wheelchairs The NHS wheelchair service offers assessments to determine what type of wheelchair or mobility equipment you may be entitled to. In most cases, you’ll be referred to the service by a hospital, doctor, consultant or occupational therapist. However, the specific criteria to determine who is eligible are decided locally, and will vary depending on where you live. Many wheelchair services have a waiting list for assessment appointments, so you may have to wait several weeks after referral to have an assessment.

We provide a wide range of vehicle adaptions for disabled drivers and passengers, to get you driving again.

Tel. 01377 252500 Email:

www.driffieldmobility.co.uk

Driffield Mobility | Scotchburn Garth | Skerne Road | Driffield | YO25 6EF 36

Planning for future care needs If you think the person’s mental capacity you care for is going to decline, it’s a very good idea to encourage them to make a power of attorney which won’t stop working if they lose mental capacity. It means they’re still in control, but if they do lose mental capacity someone else will be able to step in.

Types of lasting power of attorney

Setting up a power of attorney

The big differences between the types of power of attorney are the decisions they cover – financial ones, or ones about your health and welfare.

You can get the forms and guidance you need to create a lasting power of attorney online at: www.gov.uk/government/collections/lasting-powerof-attorney-forms

There are two types of lasting power of attorney. You can set up one or both.

A property and financial affairs lasting power of attorney lets someone manage all your financial affairs – for example, running your bank and savings accounts, managing your tax affairs, and buying and selling investments and property.

A health and welfare lasting power of attorney lets someone make decisions about your health, care and welfare – for example, what medical treatment you receive and whether you move into a care home.

If the person you want to help has already lost mental capacity, you will need to apply to a court to get the permission to manage their money for them.

Setting up a power of attorney is a big step. You should make sure you understand all the implications, and you may want to get advice from a solicitor.

Make sure there is a will in place for both yourself and the person you care for Your will tells everyone what should happen to your money, possessions and property after you die (all these things together are called your ‘estate’). If you don’t leave a will, the law decides how your estate is passed on – and this may not be in line with your wishes.

Your will tells people two very important things: • who should have your money, property and possessions when you die •

Independent Family Owned Funeral Directors

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You can also use your will to tell people about any other wishes you have, like instructions for your burial or cremation. Your executor will do their best to make sure your wishes are followed, as long as they don’t involve breaking the law.

Writing a will is especially important if you have children or other family who depend on you financially, or if you want to leave something to people outside your immediate family

HORTONS

FUNERAL DIRECTORS

For a personal and professional 24 hour service

01482 354246

557-563 Spring Bank West Hull HU3 6LD

01430 423031

The Old Police Box, Newport Road, North Cave HU15 2NY

www.hortonsfuneraldirectors.co.uk 37

who will be in charge of organising your estate and following the instructions you leave in your will – this person is called your ‘executor’, and you can name more than one person if you want to

If you think the person’s mental capacity you care for is going to decline, it’s a very good idea to encourage them to make a power of attorney which won’t stop working if they lose mental capacity. It means they’re still in control, but if they do lose mental capacity someone else will be able to step in.

Preparing for Residential or Nursing Home Costs Care home fees are a big financial commitment, and the decision to go into a care home is often made at a moment of crisis or urgency, such as when being discharged from hospital.

This can make finding the money to pay for fees (usually several hundred pounds a week) challenging for people funding their own care depending on where in the UK you live, care homes can cost an average of: • £28,500 per year for a residential care home • £37,500 per year if nursing is required.

Remember, you may have to pay extra for things like trips out, hairdressing and some therapies.

Registered Nursing Care Contribution is a tax-free, non-means-tested benefit, paid by the NHS to cover nursing or medical care. It’s paid whether you’re selffinancing your care or your local authority is paying for it.

To be eligible, you must: • need nursing care • stay in a care home or residential home that can provide nursing care Registered Nursing Care Contribution should still be paid if your stay in the care home is temporary. If you’re staying for six weeks or less, you won’t have to be formally assessed. Instead, your need for nursing care will be based on information provided by the care home or your GP. This can be quite a useful contribution towards costs if you need regular periods of respite care.

• current income (including unearned income) and benefits • your marital status • the location of family and friends • your assets, in particular shares or other investments liable for Capital Gains Tax • your property ownership • liabilities that could reduce the value of your assets or your estate • your attitude towards risk

Where to find a specialist care fees adviser You can use The Money Advice Service Retirement Adviser Directory to find a specialist care fees adviser in your area. www.directory.moneyadviceservice.org.uk You can also visit the Society of Later Life Advisers (SOLLA) website: www.societyoflaterlifeadvisers.co.uk/ SOLLA advisers undertake extra training and professional development before becoming full members.

How to apply for Registered Nursing Care Contribution If your care needs are being assessed by your local authority ask them to assess you for Registered Nursing Care Contribution at the same time or contact your local Clinical Commissioning Group: NHS Hull CCG - Tel: 01482 344700

Independent Family Owned Funeral Directors

There are independent financial advisers that focus specifically on care funding advice, often referred to as specialist care fees advisers.

They are regulated by the Financial Conduct Authority (FCA) and must stick to a code of conduct and ethics and take responsibility for the suitability of any product they recommend.

A specialist care fees adviser will go through a factfinding process with you to assess and understand your needs and circumstances.

This will include questions about: • the level of your care needs and the attitude of your family • the care that’s currently available and what care will be required in the future • the potential cost of nursing care or the care home you’ve chosen

Planning your funeral in advance can bring real peace of mind for you and your family.

When the time comes you can trust us to make sure everything will be just the way you want it to be with no added worries.

We offer a range of funeral plans that deliver peace of mind for you and your family.

Our plans offer easy and accessible funding options that are flexible to your financial situation.

• Tailor made to your requirements • Flexible ways to pay • Personal service and expertise at a time and place to suit you

HORTONS

FUNERAL DIRECTORS

For a personal and professional 24 hour service

01482 354246

557-563 Spring Bank West Hull HU3 6LD

01430 423031

The Old Police Box, Newport Road, North Cave HU15 2NY

www.hortonsfuneraldirectors.co.uk 38

Social Care & Independent Living What is social care?

Sheltered Housing

Many people’s first impression or thoughts of social care might be a residential care home. In fact, there’s a wide variety of social care services available and most who need social care support will be able to have care provided in their home. The kind of social care support that you can get depends largely on your needs. This means the type of condition you have, or the severity of your disability. For example, if you have a neurological problem that causes you to have trouble walking you may simply require some equipment to help you remain mobile and independent. However, if you have a significant neurological problem that seriously affects your mental capacity or ability to move and look after yourself, you are likely to need a much wider range of social care services. It is worth taking time to think about your specific needs and what you think you might need to help you achieve the best quality of life you can.

Sheltered housing is a good option for older people who enjoy independent living but want the reassurance of additional support

Care and support services might typically include: • equipment • help in your home or in a care home • community support and activities • day centres • home adaptations • residential care • financial support • information and advisory services, and advocacy • support for carers • other support for care

How do I get Social care?

If you have decided that you need social care support, you may want to think about the type of support you require, be it homecare workers, equipment or respite breaks. Your first step should be to ask your local authority social services department for an assessment of you needs.

Local authorities have a duty to assess anyone who appears to need the community care services they offer.

The assessment by the local authority is important because it helps them work out what your difficulties are and what services will help you most. Each local authority has its own way of working out who is eligible for social care support and what services it can offer.

For more information on how to get your Carer’s assessment ...

Contact any of our Hull City Council Care Management teams on: Tel: 01482 300 300 Email: socialservices@hullcc.gov.uk www.hullcc.gov.uk 39

Schemes usually consist of between 15 and 60 selfcontained homes which may be bedsits (studios), flats, bungalows or luxury apartments.

There is a minimum age for residents, usually 60, sometimes 55 and very occasionally 50.

This type of housing appeals to people who like living independently but want the reassurance of knowing that assistance is on hand if there is an emergency, or who want the possibility of socialising in a community of people in the same age range.

Reasons to consider sheltered housing  It might be that your current property is simply too big for you now, or that you are having trouble keeping up with maintenance and repairs. Sheltered housing can offer a smaller and easier-to-manage alternative.  Sheltered housing properties are built with older people in mind, and are usually compact and easy to get around. Most have been built (or adapted) to suit people with reduced mobility or disabilities. Features and lifts, can make life easier  Opportunities to socialise with other residents of a similar age, someone who is feeling lonely in their own home may find lots of different ways to meet with like-minded people.  Sheltered housing can feel more secure than living alone. It can be reassuring to know that other people are around – to talk to, give advice or help with problems. Scheme managers can generally be contacted during the day.

Sheltered housing properties also have alarm systems, giving residents access to help 24 hours a day, seven days a week. If an alarm is activated, calls go through to the scheme manager (if on duty) or a 24-hour call monitoring centre, which will likely alert a nominated relative/friend or the emergency services  Sheltered housing is most suitable for older people who are relatively fit and healthy, as personal or medical care is not usually provided.

Extra care housing Extra care housing (also known as ‘very sheltered housing’, ‘assisted living’ or ‘close care’) is similar to sheltered housing, but there is a higher level of support and help with personal care is available to those who need it.

This type of housing is therefore attractive for couples with mixed levels of care needs as it can offer independence while also having access to care and respite services.

Care staff, sometimes employed by local councils, care agencies or social landlords, can visit residents in their flats to help with getting in/out of bed, washing and dressing. They might also help with cleaning, or provide meals. Care staff are sometimes based onsite but can also be community based, and are typically available 24 hours a day.

It is common within extra care housing for all residents to have to pay a minimum contribution towards care services, regardless of whether they require any support themselves. It is therefore advisable to enquire about these charges and the typical costs for higher levels of care, should you need them in the future.

For more information on extra care housing schemes contact the Elderly Accommodation Counsel (EAC) Housing Care service to find out if there are schemes in your area - Visit: www.housingcare.org/ or Telephone: 0800 377 7070,

Supported living Supported living is a concept that was developed as an alternative to institutional care for people with learning disabilities The main principles of supported living are that people with learning disabilities own or rent their home and have control over the support they get, who they live with (if anyone) and how they live their lives. Supported living assumes that all people with learning disabilities, regardless of the level or type of disability, are able to make choices about how to live their lives even if the person does not make choices in conventional ways.

Why choose supported living services?

Supported living services may provide a good option in some circumstances – offering flexibility, and perhaps even better value for money than some of the alternatives, whether you fund your own care or receive a personal budget. The first time you hear about supported living services may be during a care needs assessment by social services. They will let you know about supported living services available locally if it seems like they might meet your needs.

A choice of elderly care options, here for you in Hull We know that personalised care in warm and welcoming care home, that's close to your family and friends is really important.

That's why we offer long and short stay elderly care options in Hull. What's more, you don't need our health insurance to stay with us.

We have an open door policy, so you are welcome to pop in to the home at any time. However, we recommend you avoid visiting at main meal times as these can be very busy. If you would like to speak to the home manager when you visit, you can make an appointment by calling us first.

01482 706636

Saltshouse Haven | 71 Saltshouse Road | Hull | HU8 9EH

Day Care | Palliative | Parkinson's | Residential | Nursing | Residential Dementia | Respite | Crisis Beds | Re-enablement Placements | Pet Friendly 40

Social Care & Independent Living If you find it difficult to carry out personal care routines – such as washing or dressing – home care services can provide the extra support that you need. Home care services (also known as domiciliary care) provide carers or personal assistants who can visit you at home to help with a wide range of tasks Choosing the right home care agency If you are considering using a home care agency Here is a list of questions you should ask a home care agency; ensure you get all the answers that you need.

About the carers • Will I have a regular carer?

• What will happen if my regular carer is off sick?

• What happens if a carer is unable to get to me because of adverse weather conditions or a traffic accident?

• How many different carers are likely to visit me?

• What sort of training do the carers receive? Do they have an induction period? How often is their training updated?

• What qualifications do they have?

• Will carers keep written records of the care that has been given, and accurate timesheets for me to sign?

• Can copies of the records be sent to me if I want them?

About your needs • How will you match the most suitable carer to my needs?

• Will you be able to find carer(s) that can visit at the time I need care?

• What happens if a carer and myself are incompatible?

Could a different carer be requested?

• What happens in the event of a medical emergency?

Will the agency carer stay with me until help comes?

Will they notify me of any problems?

• How will carers get into my home if I cannot answer the door? How will that information be kept secure?

About the agency • Do you have a standard contract for work with private clients? Can we see a copy?

• What are your hourly charges? Are there any minimum charges (such as a minimum number of hours per week)?

• What happens on weekends and bank holidays? Is care provided? Is there an additional charge at these times?

• How is payment required – by cheque, direct debit or some other way? How often is payment required?

Monthly or weekly?

• What insurance do you have to protect my home, for example, in the case of damage to property, the carer making a mistake, or the carer having an accident in my home?

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• How do you ensure quality of care is maintained?

What are your quality assurance policies and procedures?

• Who should I contact if I have problems with a carer or the service provided?

• Is it possible to try you for a short trial period initially, to see how it works out?

The benefits and drawbacks of home care services The benefits ...

Home comforts: they allow older people to stay in their own homes for longer.

Time: they may prevent, or delay, a move into sheltered housing or a care home.

Stability: your relative can maintain contact with friends and their local community.

Peace of mind: for you, and your family, that your relative is being looked after and is not alone.

Flexibility: home care services are flexible and your relative can have as little, or as much, help as they need.

Care can be tailored to fit their needs.

Agency responsibility: most care is provided by agencies, which means that the agency is responsible for vetting staff and will cover absences if necessary.

Duty of care: local authorities have a duty of care to provide help to those with eligible needs.

Standards: care agencies must be registered with national regulators who check that they are working to set standards and, in England, rate their services.

Cost: receiving care at home might be a lot cheaper than moving into a care home, depending on the amount of care needed.

Pets: if your relative has pets, they can continue to live with them.

The drawbacks ...

Different staff: with an agency, although the aim is usually to provide consistency of care, sometimes different staff may be used in times of staff sickness, holiday or when there is a shortage of careworkers.

Careworkers will try but might not always call at the arranged times (for example, if they have to deal with an emergency at their previous call), which can be particularly difficult if the older person needs to be helped to the toilet.

Geographical limits: your relative’s choice of care services may be limited by what’s available in their area.

Care at Home

Address

Area

Postcode

Telephone

Data correct with CQC

At Westwood Care we understand how important it is that you are able to stay in your own home.

We are here to help you do just that We specialise in the following care: • • • • • • • •

Yorkshire Ltd

Learning & Physical Disabilities Mental Health Complex Health Needs Older People Palliative Care Children and their families Long Term Conditions Sensory Loss

We offer the following: • • • • • •

Westwood Care & Support Services

Personal Care Medication Administration Food Preparation Shopping & Light Domestic Duties Hospital Visits Social Inclusion & Activities

We Support stwood Care and Se CQC o rvices Yorkshire Ltd. v

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Good

28th Ma y 2016

Independence is a vital part of your dignity, sometimes, as life goes on, it's possible to feel isolated in your own home. That's why at Westwood Care we can tailor your care to meet all of your individual needs.

Please call us on 01482 629 506

www.westwoodcareandsupportservices.com

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Social Care & Independent Living Care homes may be arranged through the local authority but many people will want to arrange them independently. It is a good idea to visit several homes before making a choice. Make sure you spend enough time in each home to get a good idea of what it is like.

Choosing the right care home

Choice of accommodation

Choosing a care home is one of the most important decisions you’ll ever make. You need to make sure it’s got everything you need, in a place you’ll be happy, at a price you can afford.

The law says that where the local authority is funding accommodation it must allow the person entering residential care to choose which care home they would prefer. Social services must first agree that the home is suitable for the person’s needs and that it would not cost more than they would normally pay for a home that would meet those needs. If the person chooses to go into a more expensive home, a relative or friend may be able to ‘top up’ the difference in cost.

When choosing a care home you need to recognise that your care needs are likely to increase over time.

• Make a shortlist of suitable care homes in your area that fall within your budget.

• Request an information pack from the homes on your shortlist.

• Request a copy of their contracts and/or terms and conditions.

• Make sure they have vacancies or establish how long their waiting list is.

• The cost of care varies from region to region – you could save money by relocating.

• Don’t forget to take into account additional costs that may not be covered in your residential fees, such as meals and day trips.

• Check how much notice you need to give if you move out and how much notice you will be given if the home is to close.

• If your funding is local-authority assisted, check that you pay the same rates as self-funders and find out whether a top-up payment is required.

Check the care home’s official inspection report

How much is it going to cost?

Care-home fees vary considerably around the country, but on average you should expect to pay approximately £28,500 a year for a residential care home and £37,500 if nursing care is required.

Your local council may be able to help with costs depending on your circumstances.

Before visiting any care homes in person, you need to be very clear about what it is you’re looking for. Make a checklist of the things that are important to you, along with a list of questions to ask the managers and staff.

Don’t be embarrassed – you’re about to make a lifechanging decision.

Residential care homes provide living accommodation, usually in an en suite room with meals in a dining area and help with personal care, such as washing, dressing and going to the toilet. You may need to move to a care home if you need care throughout the day and night, and if this is impossible to arrange, or afford, at home

The benefits and drawbacks of care homes If your needs can no longer be met at home, there are benefits to moving to a care home. Although there may be downsides too, knowing what to expect can help you make realistic decisions.

The benefits ...  Safety: there is always someone around.  Staff on duty 24/7: in a residential care home, someone is on call at night. In a nursing home, care is provided 24 hours a day.  A room of their own room: your relative can usually personalise this with their own furniture, pictures and ornaments.  Meals: regular meals provided and nutritional needs met.  Companionship: opportunity to socialise with others of their own age and take part in organised activities or outings, where available.  Peace of mind for family that a vulnerable older relative is being taken care of and is not living alone.  Supervision of medication.  No worries about household bills or upkeep.  Better living conditions: the physical environment may be better – safe, warm and clean.

If your life is affected by dementia We are here to support you Telephone: 01482 211255 43

The drawbacks ...  Choice: there may be a limited choice of homes with a vacancy for your relative, depending on their circumstances.  Unfamiliar surroundings.  Loneliness and loss of contact with neighbours and old friends.  Emotional effect: families can feel guilty that they are not looking after their relative themselves, even though this may no longer be practical.  Your relative may feel rejected: it can help if you talk things through beforehand, possibly explaining that you or other family members are unable to give them the care that they need. Regular contact once they’ve moved in will also help.  Loss of independence, although a good home should encourage your relative to be as independent as they can be.  Lack of privacy: this might be difficult for your relative to adjust to.  Small living space: your relative won’t be able to take all of their furniture and personal possessions with them.

 Variations in care: all homes have to achieve a minimum standard to ensure they can be registered, but quality of care may vary from home to home.

Doing your research, and asking around for recommendations, should help you avoid the less suitable ones (see Choosing a care home).  Cost: care homes can be very costly, particularly if you have to fund your own care. If relying on local authority funding, you must be assessed as needing a care home. Sometimes you and the local authority might disagree on what is needed.

What your choices are A list of all nursing and residential care homes within your locality can be found on the following pages.

Every care home in England must be registered with the national regulatory body Care Quality Commission (CQC). They inspect each care home on a regular basis and write an inspection report for you to read. It is advisable to read this report before making a final decision.

To check up-to-date information on the Nursing and Residential care homes within your locality visit: www.cqc.org.uk

Westwood Care Group Dales House

Specialists in Residential care for adults with: Learning and physical disabilities Complex and multiple needs.

A safe, relaxed and homely environment. We pride ourselves in building social environments that enable our residents to participate in a social lifestyle and be a valued member of the community.

Newly refurbished, our home has all the facilities required to cater for the needs of our residents whilst our dedicated team of highly trained staff ensure their well-being.

You can get in touch with the team at Dales House by using any of the contact details below.

Call us on 01482 343601 or 07974 418789

enquiries@westwoodcaregroup.com | www.westwoodcaregroup.com

Dales House CQC overall rating

Good 14th May 2015

Dales House | 304 Cottingham Road | Hull | HU6 8QA 44

Residential & Nursing Homes Residential Homes

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Nursing Homes

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Data correct with CQC

FoxgloveCareLtd We provide specialist residential services for adults who have a learning disability, autism, complex needs and behaviour that can challenge.

Foxglove Care Ltd Office: 96-98 Church Street | Sutton | Hull | HU7 4TD

Tel: 01482 826937 Email: Jo.tuttle@foxglovecare.co.uk

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Saltshouse Haven A choice of elderly care options, here for you in Hull

01482 706636 Saltshouse Haven | 71 Saltshouse Road | Hull | HU8 9EH

Residential & Nursing Homes Residential Home

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Nursing Homes

Address

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Data correct with CQC

Westwood Care Group Dales House

Specialists in Residential care for adults with: Learning and physical disabilities Complex and multiple needs.

A safe, relaxed and homely environment Newly refurbished Dedicated team of highly trained staff

Call us on 01482 343601 www.westwoodcaregroup.com

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Beverley Grange Nursing Home

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Quality Residential & Respite Care for the Elderly in Beverley Dementia Care | Respite Care | Day Care Long Term | Short Term To arrange a visit please call 01482 679955 46

Useful numbers for support in your area Responsible for commissioning healthcare and wellbeing services for the people in Kingston upon Hull Tel: 01482 344700 www.hullccg.nhs.uk

The Carers' Information and Support Service (CISS) is a service dedicated to supporting carers Tel: 01482 22 22 20 http://ciss.chcpcic.org.uk

Hull Young Carers and Sibling Support Service.

Tel: 01430 810022 www.barnardos.org.uk/hull_young_carers.htm

Get advice and support for carers and the people they care for.

Tel: 01482 225 078 www.carerscentrehull.org.uk

Kingston upon Hull Have your say on health and social care in Kingston upon Hull.

Tel: 01482 324474 www.healthwatchkingstonuponhull.co.uk

Detailed information about the council and its services.

Tel: 01482 300 300 www.hullcc.gov.uk

Services to older people in Hull.

Age UK Hull advice hotline: 01482 324644 www.ageuk.org.uk/hull/

Free, confidential, impartial advice.

Telephone Advice line: 01482 224608 www.hullandeastridingcab.org.uk

Free, confidential, impartial advice.

Hull & East Riding Office: 01482 211255 www.alzheimers.org.uk

Promotes the views and needs of people with mental health problems.

Tel: 0300 123 3393

We’re here for people living with any terminal illness, and their families.

Tel: 0800 090 2309 www.mariecurie.org.uk 47

www.mind.org.uk

Monday–Friday 9.00am–8.00m For confidential cancer information and support.

Tel: 0808 808 00 00 www.macmillan.org.uk

Support and advice for people living with mental ilness.

Tel: 0300 5000 927 (Mon-Fri, 9.30am-4pm) www.rethink.org

Information on child and adolescent mental health.

Services for parents and professionals.

Tel: Parents' helpline: 0808 802 5544 (Mon-Fri, 9.30am-4pm) wwww.youngminds.org.uk

Confidential support for people experiencing feelings of distress or despair.

Tel: 116 123 (24-hour free helpline) www.samaritans.org

Free counselling service for children & young people until their 19th birthday.

Tel: 0800 1111 www.childline.org.uk

The UK's largest disability campaigning organisation.

Office Number: 020 7250 8181 www.radar.org.uk

Parkinson's is a support and research charity, working to find a cure and improve life for everyone affected by Parkinson's.

Tel: 0808 800 0303 www.parkinsons.org.uk

y Formerl e called th RNID

Provides a range of services for people with a hearing impairment.

Telephone: 0808 808 0123 (freephone) Textphone: 0808 808 9000 (freephone) www.rnid.org.uk

For impartial, confidential advice and support on autism for anyone affected by, or researching autism.

Tel: 0808 800 4104 www.autism.org.uk

Epilepsy Action aims to improve the lives and promote the interests of people living with Epilepsy.

Tel: 0808 800 5050 www.epilepsy.org.uk

Supporting people with sight loss Tel: 0303 123 9999

www.rnib.org.uk

Mencap is a UK charity for people with a learning disability.

We support their families and carers.

Tel: 0808 808 1111

www.mencap.org.uk

Helping People with Down's Syndrome to live a full and rewarding life.

Tel: 0333 1212 300 www.downs-syndrome.org.uk 48

Specialists in Mental Health, Dementia & Complex Care Packages We provide a range of flexible care and support services to meet your needs throughout Hull and East Riding Hull Hom Dementia & Elderly Care ecare CQC o verall rating Complex Care Good Adults, Children & Young People Palliative Care Head & Spinal Injury Rehabilitation Home Ventilation & Respiratory Support Renal Care Learning Disabilities Support 24 Hour Live-in Care Sitting Services Including Overnight Support Minimum 4 Hour Call Policy - All Enquiries Welcome

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This is one of the biggest decisions you will have to make, would you allow someone else to control your Banking? Your Mortgage? Your choice of Doctor?

Why leave your care needs in someone else’s hands?

Choose Hull Homecare and be involved with choosing your own care team, hand-picked to match your requirements.

Choose Hull Homecare and receive monthly progress updates on your care.

Our Friendly Team are here to help

Call us 7 days a week on 01482 236637 Email: admin@staffcalluk.net

www.hullhomecare.com

Hull Homecare is a division of Staff Call UK Ltd.

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Let us help you to stay together."