Displaced People by Jo Szczepanska

a portable piece of home Mneme is a bag for transporting memories and belongings during the transition from home to hospital in the case of Alzheimers sufferers, esentially a tool to help patients and their caregivers prepare for short hospital stays. Focusing both on the practical aspects of packing the product also uses muti-sensory stimulation simular to snoezelen rooms to put patients at ease.

Jo Szczepanska 1 Dick van Hoffe

Contents

Initial Observation Exercise 4 Writing post binding 5 Results of the Exercise 7 Displacement Definition 8 Childish Hands 9 Elderly Hands 15 Dexterity Testing 19 Arthritis Today and Coping Devices 22 Senior Phone 24 Growing Old in America 25 Utrecht Manifest 29 Unforeseen Magic & Unresolved Matters 31 United Minds: Hoograven Invites You! 33 Charts from Papanekâ&#x20AC;&#x2122;s Design for the Real World My Hospital Visit Catharina-Ziekenhuis 38 Looking what make hospital more homely 40 Packing for an Expectant Mother 41 Investigation into Packing and Organising 49 1st sketch model packing/bath robe 52 Placement of objects, accessibly 54 Things that calm Alzheimerâ&#x20AC;&#x2122;s Suffers 57 Reflection on hand exercise 59 Disability campaigns 69 Ability Campaign 73 Old Ladies' Rebellion 79 Selecting Fashions for Elderly Women 82 Advanced Style 84 Special Needs Clothing 86

Santa Rita Geriatric Center / Manuel Ocana 87 Knitting and Crocheting 88 Japanese Knitting 90 Crochet Samples 92 Knitting 96 Netting 97 Packing for hospital, Dementia 98 Snozelen Therapy 100 New Picture menus for Dementia Sufferers 107 Memory Aids 107 Sketches 108 Icons 112 Patient Info 116 1st Prototype 121 Remembering 127 Mnemosyne 128 Excerpt from Pullinâ&#x20AC;&#x2122;s Design Meets Disability Midterm Progress 136 2nd Prototype 138 Further Investigation, Material Inspiration 147

131

OBSERVATION 48 hours without use of the thumb on our preferred hand. Notes to be taken on all the things raised by being displaced.

Analyse both your actions, those of others around you and situations.

Writing post binding

TESTING Some everyday activities. From relatively easy to complete to the more difficult. A majority of tasks were able to be completed when grips and techniques were established. Small object were particularly hard to grip and control. Button pushing was difficult if it needed precision and pinch grip was gone.

Which ALL lead to the question, how was I displaced? dis·place·ment (dis-plā-smənt) n. noun 1. movement from usual site: the movement of something from its usual or correct place And how did that make me feel and function for 48 hours?

FRUSTRATED and CLUMSY hands

My hands were untrained and child like. I wanted to do things quickly but they didn't cooperate. 10

The only real difference was that I knew what it was like to have dexterity. I could see how badly I was doing things. 12

My hands felt like they had been replaced with these stumpy awkward imposters. But mine weren't cute. 14

And when that failed, which it did, I went to the other side of the spectrum, slow and careful 15

I found that I could still do a lot of things well if I took a little bit of extra time and patience with it. Not everyone liked my new approach. 16

Which I guess because it was not permanent, or painful was quite pleasant, time no longer really applied 18 to me.

Dexterity testing, Something as a displaced person I would have failed.

Products made for children to use while improving dexterity

in America alone 1.3 Million people suffer from Rheumatoid Arthritis, and they had some interesting ways of coping Arthritis Today, Self treatment, 22 http://www.arthritistoday.org/ treatments/self-treatments [25-0909]

Clothes buttoner

â&#x20AC;&#x153; The senior phone is a break through in independence of elderly citizens. With large keys, loud ring tones, and a duress alarm, the senior phone is ideal for elderly citizens who enjoy living independently.â&#x20AC;? Senior Phone, Home, http://seniorphone. com.au/ , [25-09-09]

Growing Old in America: Expectations vs. Reality PEW Research Centre, Growing Old in America: Expectations vs. Reality, http://pewsocialtrends.org/ pubs/736/getting-old-in-america , [accessed 26/09/09]

All this research made me think about all the people behind the scenes who may be helping the elderly in the community 27

Utrecht Manifest is a biennial cultural event in and around the city of Utrecht that is multidisciplinary in character. At the heart of the biennale stand the disciplines of design and architecture, which play a guiding role in the eventâ&#x20AC;&#x2122;s programming. The Utrecht Biennale Foundation seeks to establish associations with other cultural domains in its programme of activities: the performing arts, literature and also socio-political debate.

Unforeseen Magic & Unresolved Matters: Social Utopias Revisited Analyses and visualisations of the urban area Hoograven that challenge visitors to join in thinking about social design and urban development. Revisiting the shaping of the social since the 20th century. CM Studio and Centraal Museum, Utrecht 31

United Minds: Hoograven Invites You! Analyses and visualisations of the urban area Hoograven that challenge visitors to join in thinking about social design and urban development. In De Pastoe Fabriek, Rotsoord 3, Utrecht 33

Papanek, Victor (1971). Design for the Real World: Human Ecology and Social Change, New York, Pantheon Books .

Papanek's look into

handicapped people seemed to correlate closely to the research I had done, but the diagram was much easier on the eye

My Hospital Visit Catharina-ziekenhuis

looking what make hospital more homely

For a Mother Comfortable robe Nightgown Nursing bra and nursing pads Warm socks Slippers Comfortable outfit you can wear home Sanitary pads Toiletries such as shampoo, conditioner, deodorant, moisturizer, lip balm Hair clips, scrunchies, barrettes Brush or comb Toothbrush and toothpaste For Partner Change of clothes Book or magazine Toothbrush, toothpaste, and other basic toiletries At least $20 in cash and change for snacks, phone calls, and so forth Snacks or soft drinks in small cooler Watch with a second hand for timing contractions For Baby Car seat Newborn hat 2 receiving blankets

2 “onesies” 2 pairs of socks “Going home” outfit -- including sweater or bunting if the weather is cold Diapers and diaper bag Documents Birth plan Insurance cards Address book with phone numbers Birth announcements and postage stamps Extras Electric heated massager or tennis ball (very helpful for lower back pain or leg cramps) Massage oil Personal stereo and headphones Favorite tapes or compact discs Some books and magazines Camera or video camera (and film and fresh batteries!) Extra pillow Gift for sibling Hard candy to suck on during labor Lanolin, if nursing Cell phone

packing for hospitalisation 41

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Along with 15 colleagues and a reporter, Mrs. Ramirez, a social worker at the facility, put on distorting glasses to blur her vision; stuffed cotton balls in her ears to reduce her hearing, and in her nose to dampen her sense of smell; and put on latex gloves with adhesive bands around the knuckles to impede her manual dexterity. Everyone put kernels of corn in their shoes to approximate the aches that come from losing fatty tissue. They had become, in other words, virtual members of the 5.3 million Americans age 85 and older, the nation’s fastest-growing age group — the people the staff at the

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Objective Self-Awareness and Stigma: Implications for Persons with Visible Di... Andrew A Phemister; Nancy M Crewe Journal of Rehabilitation; Apr-Jun 2004; 70, 2; ProQuest Social Science Journals pg. 33

Vintage Winter Museum Swiss Military Rucksack c. 1923

investigation into products for packing and organising

The idea is that it is something that

The making of helps to pack while also giving 1st sketch model you a piece of home you can take 52 packing/bath robe with you anywhere.

Playing around with the placement

The making of of objects, trying to create regions 1st sketch model or sections and make everything packing/bath robe accessible.

I will have to look into what people take to hospital or on a trip in order to feel at home. Looking at what is recommended when caring for people with Alzheimer’s the following things were interesting to find out. • Talking about the past together, while looking at old family photos or books with pictures, or listening to music. • Make up a memory or rummage box of objects that the person with dementia might be interested in. Physically handling things may trigger memories more effectively than looking at pictures. • Encourage the person to touch or stroke pieces of fabric, dolls or cuddly toys. During the later stages of their dementia, people often develop severe difficulties with reasoning and language, but they will still have their sense of taste, touch and smell.

LOOK INTO • Use of symbols to make the packing process easier •Adding tactility and personality • Ways on integrating images and music

•Final fold up/ potentially into a bag • Use of fasteners •Different types of pockets • Transparency in pockets So you can see what you have in there •Heavy duty pockets for things that are fragile or liquid etc...

Reflection

I had a look at some if the images I had taken of my hand at the beginning of this exercise. It didnâ&#x20AC;&#x2122;t look quite human so I had a bit of a play with that idea.

Harlan D Hahn; Todd L Belt Journal of Health and Social Behavior; Dec 2004; 45, 4; ProQuest Social Science Journals pg. 453

Disability Identity and Attitudes Toward Cure in a Sample of Disabled Activists*

68 Reproduced with permission of the copyright owner. Further reproduction prohibited without permission.

look at some interesting disability campaigns

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The phone rings, it’s my partner speaking through tears, “The shop is closed!”

It may sound like an overreaction to you, but if you were shown what a person in a wheelchair has to go through just to get from A to B, you’d see it differently. Imagine being told: no you can’t go to that station,

no you can’t visit this store, no you can’t sit in that row at the cinema, the fourth bus to come to this stop might be accessible, if you go back up the steep hill around the corner down the lane third shop on your right through a heavy door there may be a lift. “Is there a step to get into that shop?” Err . . . yeah . . . sorry. Sound ridiculous?

Well, you’re right, it is. Unfortunately it’s also real. The lack of accessibility not only affects people in wheelchairs, it affects people that know them. It’s hard for me, listening to the frustration and tears from someone I love . . . and not to be able to help. To be on the other end of the phone, agreeing

that, “the lack of accessibility on public transport, at venues, and to and from them, is ridiculous”. I wish there was an easier way for people in wheelchairs to get from A to B without having to settle on C . . . or any other letter of the alphabet. By Michelle Horn

12 DontDISmyABILITY.com.au

Sharpen Your Pencils, Pictionary is Back! TM

Host a game of Pictionary™ in May and raise money for those with autism. Anyone who’s ever played Pictionary knows the frustration of trying to make your drawing understood by your teammates. This frustration is very similar to the constant communication challenges facing one in 160 Australians living with Autism Spectrum Disorders (ASD). TM

Pictionary , the classic game of ‘quick draw’ has teamed up with charity Alpha Autism for Drawtism® and we want you to host a game of Pictionary during May. TM

Whether you fancy yourself as the next Picasso or just love a bit of feel-good, ‘healthy competition’, you’ll definitely have fun…whether playing with family, friends, work colleagues or a game at the pub! Most importantly, you will help to raise urgently needed funds to support people living with autism. So, what are you waiting for? Sharpen your pencils, grab some paper and start drawing!

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CAMPAIGN

So I had a quick play with the idea of starting a campaign, potentially it might be easier to pick one specific disability and go after that.

Old Ladies' REBELLION Fashion designs of 24-year- old French designer Fanny Karst. At this stage I am really having a hard time finding any fashion orientated resources for design for older people. At least this one designer is having a bit of fun with the concept.

http://www.oldladiesrebellion.com/index.html

The oldest model in the Old Ladiesâ&#x20AC;&#x2122; Rebellion is 80, the youngest 60. They all have white hair, variously chignoned, bobbed or bunned. One of them strolls with a silver-topped walking stick; they all look tremendous. Karstâ&#x20AC;&#x2122;s clothes are so good that you are drawn not to the fabric but to the woman.

Selecting Fashions for Elderly Women It is important for a woman to feel that she is maintaining her independence and that her personal needs are being met with her attire, even if she is not personally selecting the fashion items. If selecting clothing for someone else, continue to seek her input and pay special attention to her comments about what she enjoys wearing and fashions worn by other women with whom she has contact. Look for fashions that: •

Matches her personal style. – She will probably want to wear the same styles and colors that she has worn for many years. If she liked classic styles when she was 50, she will probably still want to wear classic styles. If she was proud of her avant-garde style when she was younger, she will probably not be comfortable in soft colors with teddy bear appliqués.

•

Are her correct size. – As women get older their overall physical stature often shrinks, and they may need smaller sizes and shorter garments. Oversize clothes may be comfortable but the extra fabric might cause the wearer to stumble and fall. Measure clothing that fits her well to determine what size to purchase if you are unsure of her size and the size tags are no longer readable in her clothing.

•

Are easy on/off styles. – Small buttons, snaps and small zippers are all difficult for some elderly women to maneuver. Look for pull-on and wraparound styles of tops and pants. Front-closure bras may be significantly easier for a woman than having to twist her arms in order to reach around her back.

•

Are made from easy care fabrics. – Look for fabrics that can be machinewashed and -dried in either a home or care environment. Avoid fragile fabrics that cannot stand up to the potentially rough handling of an industrial washer in a care environment. Also avoid fabrics which will require special care such as hand-washing, hang-dry or ironing. Are comfortable to wear. – Avoid closures and seams at the back of the top or on the back of the legs that would become uncomfortable during prolonged sitting. Fabrics should be soft against sensitive skin.

•

Provide layers to stay warm – Look for wraps and shrugs that can be worn over tops and dresses to ward off a chill. Layering is particularly important when the woman is in a group environment where she cannot change the thermostat to meet her particular needs. Wraps and shrugs are particularly good gifts for a nursing home resident.

•

Shoes should have non-slip soles to minimize the risk of falling. Look for easy-on, easy-off styles that help a woman change or remove her shoes. Athletic styles with Velcro closures can provide a steady, firm base for the feet and are easy to put on and remove. Susan Weber, Fashions for Elderly Women, http://seniors.lovetoknow. com/Fashions_for_Elderly_Women, (accessed 16/10/09)

•

ADVANCED STYLE

http://advancedstyle.blogspot.com A blog showing examples of older people who are engaging with fashion, having a personal style.

Santa Rita Geriatric Center / Manuel Ocana

An interesting approach to creation of a geriatric center, basic it around creating opportunity for new experiences. http://www.archdaily. com/24725/santarita-geriatric-centermanuel-ocana/

Great Special Needs Jumpsuit

The Great Special Needs Jumpsuit can help solve compulsive stripping problems with Alzheimerâ&#x20AC;&#x2122;s patients. The superior adaptive anti-stripping features include extra secure fasteners at back to prevent disrobing. It also has dome closures and an elasticized back waist. Open fly. Terrific in a nursing home or hospital setting. Made of extra-durable machine washable cotton-polyester twill. 86

http://www.silverts.com

KNITTING/ CROCHETING

At this stage I am considering using crocheting or knitting in elements of the product, because they allow and promote use of warm natural fibers, and to a certain degree exude warmth that cannot really be found in synthetic and manufactured fabrics. Potentially will use a combination.

Japanese Knitting techniques

Provide a range of new textures and feeling that might be interesting to explore. Images above from Clear and Simple Knitting Symbols よく

わかる編目記号ブック― 棒針あみ120 91

Crochet samples

SINGLE CROCHET

These samples are made using the Single Crochet stitch, The single crochet is the most basic crochet stitch for making fabric. All the other stitches are variations on this one.

Double CROCHET The double crochet (abbreviated dc) is one of the most common crochet stitches and is about twice as tall as a single crochet. A fabric made of all double crochet stitches is fairly solid but not stiff and is great for sweaters, shawls, Afghans, place mats, or any number of other home decor items. You can also combine the double crochet stitch with other stitches to produce many interesting patterns and textures.

I also played with making textures, floral things. 95

KNITTING

Knitting is a method by which thread or yarn may be turned into cloth. Knitting consists of loops called stitches pulled through each other. The active stitches are held on a needle until another loop can be passed through them. Knitting may be done by hand or by machine. By hand, there are numerous styles and methods. Flat knitting, which can be done on two straight needles or a circular needle, produces a length of cloth, while circular knitting, which is done on circular or double-pointed needles, produces a seamless tube.

Netting

I am interested in incorporating netting into the final product, this will allow for transparency in the packing, as well as giving the pack itself a chance to expand. A good example is Cargo Netting used by the military. So Iâ&#x20AC;&#x2122;ve made a few different sizes in yarn to evaluate if they might work well in the final product.

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This is wh bed clothe for entily. ia or the following ma their fam alzhinit ts to other rooms case of back up er cle mself't and patan/ Hi Jo, I hope ely ients liver the conten are fully def eim get to the "de rn/ ckly a or wo e or and unique to the canare nge par be toil nt hav rra to tly et ere did inco qui rea yet It diff . ntin s/ is not ent eno ldsim ned , the ugh /sp cou ope ble , y individual be ore or eith cta bes to ref er e t spe ply the forg is abl /re inco can et and asgo, or becaus ntiness rembe ent it, ember where ven pro mislaid, to "good/new ducts, moistu the hospital and'tnot not acc it be e of age and di doubled as the et ing is. Therefore lots disabilities my Mum could it, to pre thet toil pants wit ss son h the patient to reproof e h pad of clean undies are rdrobe, where included. (In Aus and addre en delivered wit shelf of her wa *4.beHip tralia a leading bra needed Mum's full nam de , but the then have ld and Sav e" cou ers it cas are as tal , nd like spi is a panty girdle, wit TENA. products.) h "Ho wit dle It was not locked han ligh h twe the a pocket on the hip ight pad el attached to bone area which ir ow n. ding to protect the hips and pre the as have distinct lab it and *1. hol ise . wo ds ms ogn ven me a tto sol n t rec a wear them, day bo ture to the hip id but soft and flex t did not tch pyjamafrac and nigand maen ible protectiv area, as dement ht, wh often the patien tive they age and live of extra mix ia/older pat ients in residential car o had a couple tend to have many WeAals e homes. spare second dre ee pairs. *5. f s, men fall thr st lea at ssin S, g gow n is not alw 1. PY JAMA and a heavier one ays affordable to som for winter. Gener e older people, but ally two for each the *2. alte ee. rna ofte thr te n st sea the sea y have a lightweigh son dressing gow *3. son is needed, so at lea n in Mum's case t one for summe that there is always 2. SINGLETS 5 to 6 pairs. and then we kne r a clean one to put PANTS, at least w there was alw on. I used to pac *6.CEMo ays a clean one, st hospital /nursin R INCONTINEN /O k TS AN rea g RP hom dy to go to the hospita e pat 3. UNDE oneien*4 ts are not allowe knees. Some of erwise just the l. d to sit in bed all ns two, oththem have a bed jacket aro owto day, they are gen east ier if patien rs, und pai get the era ir the two sho lly m placed in a chair, ulders, instead of to the toilet, etc. 4. HIP SAVERS with a rug over the sitt ing in the dressin without the DG aro well as keeping the und the legs in the g gow n all the tim chest and back e. It also makes bathroom. A ligh warm. *6. tweight jacket pro it GOWN *5 n. G ma SIN a ES for DR tects "their mo 5. *7 Slippers, we POLAR FLEECE jacket m desty" as HTWEIGHTusually had several pairs on the LIGslip lady or ainto per a go, s. for and I use ET the d CK y need to be washa to have a new pai 6. BED JA r in the hospital cas the case. Non slip ble, for some of the above reason e and rotate soles are essent s, as urine can flow ial. Elastised top slippin g is high, them the follow ing season and *7 of s or sides risk the replace them wit hel as p to se 7. SLIPPERS kee p them on feet. *8. My mum lovee don't usually like the ) h new o list r ones into you to se g hom d bedsocks tocre ing the rsin add Nu if kee and tion p her sol tals all feet warm, and I es to grip the floo r dis t, sm *8 Hospi found the besttoo r, esoyou ast e, deodoran r them. (Us as to prevent slip thp 8. BEDSOCKS fit ove one ally and s com ner er we ge pin re ple y cov n't g. a ff thoer tely bedridden the bab wo seofwit Nurhsing withsta h the rubber spo contain toothbrus were rize n bedsoc r, we alltho as the slippers smpy not r,hap com ts/f ootprints on the reb,acc moistu ugh with any of the ept face washeks able, d cre andam by, that stagge e han m. Although if the Soap in a box, am fee *9. Showe t .cou*9. vin cre m, sorbelene typ person is ld sha ILETRIES bal be lip TO and , bad r G/ bag er hat ly BA r sw cov nee we ER ollen and slippers ds to have namewith a protective r, sho one 9. SHOW diti con just did not fit. wri or Bat tten and raz hro inside it, and eac oms are a dis able fit posred shampoo n sha thes. *10 h piece clo in hospitals and an would addofte travel size hair ofthe equbed you in ipm n t ow ent ma los n, a sho mo get for st Alz uld of the time. hei usurally be clearly and sec , and patient is unable glass, ndkerchiefs me urely labelled. talcum pow der Hastic onl to look after their ESy pla of "another person ketNo SU TIS and of som ow e pat ients do not rec n belongings, let " so close to them, small sof t pac or ,aand alone recognise ognise themself it is a particular kind mir, ror HIEFS a few it would be danger their in a mirror and do of trait recognisa 10. HANDKERC ous as well. No not like the conffron ble in an Alzheime and heating dries hairpins either, unle tation r pat the ien old t so er ss it persons skin so is better not to incl absolutely necess *11 cup ns. den coi ture som few a ude ary e h sor . They can be sw a is usually provide beline cream (mi 11. PURSE wit d by the hospital. allowed. Aircond ld and not irritatin it ning itio g) and lip balm are . helpful moisturise *10OK Old*12 rs. A all NOTEBO er people like han sm and *13 N y) PE enc 12. rchtim iefs e, abs it'sorb places, and get los y and dke part of the etiquet Night t in the bed te they were bro PADS (Da clothes. Tissues ught up with, but INCONTINENCE are more practic they do get stuffed 13. PACKET of al if the pat ient will into various hiding *11. Some older *14 accept them. peo ple like to try to reta . ZINES *15 GA S, MA ER L not MB FU in to NU UR their ER X put coins in their LO FA indS epe and nde nce mouths, etc MB by 14. A FEW CO having their ow n . ONE NU purse, with a few DRESSES , PHSo if in doubt, do not include. coins, but they mu CTORS and AD DO *12 st be trusted . Not TIENT'S epad and pen, som MBERS *16 15. LIST OF PA eand NU old E er ON dem PH to be able to lea ent ia pat ient are not S bulance ES Am d, DR ve AD car , a on not abl KIN nsi e on her bedside e toIns , Pe rea XT OF nce d NE or ne ura 'S wri pho use NT te, t tab tal but the TIE tac le spi pen as a weapon! for thevat con Ho sta mum nuresing ss and could, and it was dremy 16. LIST OF PA ff, or for mu e and dicare card, Pri helpful even for me m toad"doodle" in. patient's nam IDENTITY , Me Again they need in repeating the OF PATIENT'S to be trusted not *13GE . Inc Card, etc., aga IED PA air OP ont Aff ine OC s to nce OT an' PH pad ter s need to be incl 17. rd, Ve Ca alth He ude Som r's d nio etimes they will be in Membership, Se provided by the pha the case, bot h day and night abs orb enc rma *18 y, cy as hospitals will CK priv ate hospital, but numbers. *17 BSTEinRaPA generally not pro it is better to hav *14 I found that vide them. SAGES OR WE D DO e them ready. ANhos inSthe pital a few magaz DICATION ME disT trac RREN ines already in the tion CU from OF T oth LIS er hap 18. case or the drawe penings, R FO *19 or ED to Backyard" magaz NE give ES E r we Mu ITI TH re ER m when I needed helpfu , OR PAreBIL l in filling in the tim ine/CA LK s we to leaveWH favourites. The pic HISTORY EELe WA e, or used as a to com alwON PERS aysAL home. " Better Hom ICK, FOUR include a few car ture inING brigST ht col 19. PATIENT'S es and Gardens" , WAsLK ours were always , fishing CLES TAting boa SPorEC and "Burke's attr ma S, act gaz RE ive *20 ine TU and s. EN L eyecatching, for ETH/D SPITA TE HO E TO LS FA NT a man you could *15 S, SE AID A list of the pat T BE LD ien 20. HEARING t's NO specialist doctors RY SHOU LLE WE JE eye spe wa IR, s cia HA always a quick and list, and the regula A WHEELC ready referral, I r pha for the family. 20.rmacist etc with names, listed the genera MS addresses, phone l practioner, heart E LIST, in ITE and email/fax num OF THE ABOV specialist, the SHING WA 'S NT bers. Keep a cop 21. SECURITY TIE R PA FO GS y at home as we *16 A list of the BA TIC PLAS lll GE nex AR t of Y/L kin DR for UN the hospital is hel E LA the RE full TH nam OR pfu O es l as the dement ia of the family, wit 22. TW patient will not rem h phone *23numbers. SE CA em E ber TH the IN phone number or Y ARTICLE *17 EVER be able to give A pho tocopied page of 23. NAMES ON the pat ient's identit membership, Vet y cards, including eran's affairs, Pen Me dic are , private hospital sion card and Sen membership num pairs of ior's Health Card, ber, ambulance etc, will expedite *18 A list of all me a few more beork paphterw dications, including . patient there mig the be washed of eye drops, and dos pharmacy, ) with tus sta omic ent if they can con fici daily and timed dos age io/e suf . y s soc sho ma s the uld be clo ing soncould be inclthe uded. A Webst nursing home, this uirements, dependage not be every day ss these migkht(pr illnethe ichpac e of ude tim d for shing, wher e packed medicatio in at theincl adm the ly minimum reqshould allilybe dotrat l com t to ionwa theehos nd toinis o wil by frie whsen n by the sta or pita ff. l our fam wit If These are probab h the ghb has the t nei patient is being tran ambulance staff. the patien ent on a caring *19. AIfhist sferred from a ory of the PJ.s and undies y may be depend

PACKING For Hospital

Fill yo ur

By J

A c ar s itting Seein g me t S h taking to

“Snoe zel expla ined. would prob behav iours

An adventure into Snoezelen therapy

Anonymous Nursing Homes; Oct 2005; 54, 10; ProQuest Health and Medical Complete pg. 64

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SNOeZELEN

Snoezelen or controlled multi sensory stimulation is used for people with mental disabilities, and involves exposing them to a soothing and stimulating environment, the “snoezelen room”. These rooms are specially designed to deliver stimuli to may b e to s various senses, using lighting effects, color, ites o utside of AB C On line a sounds, nd as music, scents, etc. The combination such the A BC ha of different materials on a wall may be s no e ditoria l contr ol ove and the floor explored using tactile senses, Last U r pdate d: 15/1 | Priva 0/200 7 2:13may be adjusted to stimulate the sense of cy Po :18 P licy M balance. on (http:// www /about .a bc.n /cooki et.au/ es .htm privac ) y.htm this )

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Originally developed in the Netherlands in the 1970s, snoezelen rooms have been established in institutions all over the world and are especially common in Germany, where more than 1200 exist. The term “snoezelen” (pronounced /’snuzələ(n)/) is a neologism formed from the Dutch “snuffelen” (to sniff, to snuffle) and “doezelen” (to doze, to snooze).1 101 1

Snoezelen, http://en.wikipedia.org/wiki/Snoezelen

Multisensory Environments for Leisure: Promoting Well-being in Nursing Home R... Helen Cox; Ian Burns; Sally Savage Journal of Gerontological Nursing; Feb 2004; 30, 2; ProQuest Health and Medical Complete pg. 37

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Snoezelen, multi-sensory stimulation, provides sensory stimuli to stimulate the primary senses of sight, hearing, touch, taste and smell, through the use of lighting effects, tactile surfaces, meditative music and the odour of relaxing essential oils. The rationale for this lies in the proposition that the provision of a sensory environment for people with dementia places fewer demands on their intellectual abilities but capitalizes on their residual sensorimotor abilities. The clinical application of snoezelen often varies in form, nature, principles and procedures. There have been quite a few studies into the effectiveness of Snoezelen therapy, particularly for patients with Dementia, some have shown to calm patients at dusk when they often become more agitated â&#x20AC;&#x2DC;sundowningâ&#x20AC;&#x2122;, however no long term changes in behaviour have been noted. It is an activity that can be used in a patientâ&#x20AC;&#x2122;s daily schedule to facilitate a pleasant sleeping environment, and allowing people with dementia to fall asleep calmly instead of using drugs to induce steep. 103

REMINISCING

e copyright owner. Further reproduction prohibited without permission.

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Picture menu cards improve quality of life in people with Picture menu cards improve quality of lif dementia dementia 20 June, 2009 | By Clare Lomas

June, 2009improve | By Clare Providing older people with visual aids at mealtimes can20significantly theLomas quality of life of people with dementia, suggests an initiative at a specialist day centre in Manchester. Providing older people with visual aids at mealtimes can signifi with House, dementia, suggests initiative The picture menu cards were introduced two years ago people at Wilshaw Ashton underanLyne, after at a specialist day staff at the centre became aware that the older people with dementia who used the centre appeared The picture menu cards were introduced two years ago at Wils uninterested in food or eating. staff at the centre became aware that the older people with de uninterested intheir food meals, or eating. Staff also noticed that people were leaving the table without finishing and would rather sleep than participate in afternoon activities. Staff also noticed that people were leaving the table without fin sleep and thanstaff participate in afternoon Previously, the day’s menu choices were written on a board, also asked people atactivities. the beginning of the day what they would like for lunch. Previously, the day’s menu choices were written on a board, an beginning thethe day what to they would The problem with this method was that people with dementia can of lose ability think for like for lunch. themselves, and will often say the same thing as the person next to them, said nurse Les Clarke, The problemorganisation with this method was the that people with dementia c director of older people’s services at Housing 21, the not-for-profit that runs themselves, and will often say the same thing as the person ne centre. director of older people’s services at Housing 21, the not-for-pr ‘A lot of people coming to the centre had a low BMI andcentre. were malnourished. This can be a big issue for people with dementia because it can compound existing problems, such as skin or bowel ‘A lot of people coming to the centre had a low BMI and were m problems,’ Mr Clarke told Nursing Times. for people with dementia because it can compound existing pro problems,’ Mr Clarke told Nursing ‘People with dementia also get distracted easily and can’t concentrate or remember what Times. they are doing. They also have problems with language and the ability to articulate what they want,’ he ‘People with dementia also get distracted easily and can’t conce added. doing. They also have problems with language and the ability t added. As well as restoring the centre users’ interest in food and helping to stimulate their desire to eat, the initiative has seen marked improvements in their physical health and quality of life. As well as restoring the centre users’ interest in food and helpi the initiative seen marked improvements in their physical ‘A healthier, more balanced diet has resulted in less constipation andhas diarrhoea, both of which can exacerbate behaviour problems in people with dementia,’ said Mr Clarke. ‘A healthier, more balanced diet has resulted in less constipatio exacerbate problems in people with dementia,’ said ‘They are also more awake and alert, and more willing to engage inbehaviour stimulating afternoon activities which means they are more physically tired and their sleep is less disturbed at night. The menu alsoover morewhat awake and alert, more willing to enga cards have also given the centre users real choice, and ‘They more are control they eat,’ he and added. which means they are more physically tired and their sleep is l cards have section also given the centre users real choice, and more c A detailed report on the initiative will be published in the practice of Nursing Times next month. A detailed report on the initiative will be published in the pract month.

Readers' comments (3) 106

Anonymous | 20-Jun-2009 8:36 pm

Readers' comments (3)

Anonymous 20-Jun-2009 8:36 There is a company called visual communication aid that specialises|in picture books for pm dementia suffers. They have a menu and care book.

The menu devised for people with Dementia is very simular to the picture dictionary made for tourists point it. It shows that there is strength in using images and iconography when dealing with the elderly and carers.

Use memory aids

You can use memory aids and other reminders to help the person use their skills for longer. These may be of most help in the early stages of dementia when the person is better able to understand the message and to act upon it.

http://www.alzheimers.org.uk

Ideas include: •labelling cupboards and drawers, perhaps using pictures rather than words - for example, a photo of a cup and jar of coffee •a large calendar showing the day, month and year •a noticeboard for messages 107 •notes stuck by the front door.

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ICONS

A set of icons or symbols I compiled to put on the product to make packing easier using visual cues. Photos of the objects might be even better, preventing confusion. The objects depicted here have been selected based on feedback directly from carers, physiologist and various medial journals relating to Alzheimerâ&#x20AC;&#x2122;s sufferers.

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The GOOD 100 | Intro | The Cover | Behind the Scenes | Back to GOOD.is

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GooD.is

A website that quite successfully uses iconography. Although not many of the symbols are immediately clear they definitely capture the imagination 115 www.GOOD.is

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Patient information This is an attempt to organise the information that is often provided to hospital staff by carers of hospitalised people.

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Folding

Some attempts to utilise space in packing as best as possible allowing areas for large items as well as small ones. Using Velcro, Sewing and Grommets/ Eyelets as options. Possible integration of a net section.

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Soft Model

Full size test. Looking at fabrics and textures as well as the practicality of storage. Use of Velcro,snap locks, eyelets and sewing.

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Soft Model

Outcome - there is potential to create a bag, folding blanket device. What will ultimately ensure that it works is clear labels as well as its ability to incorporate aspects of home. I will need to look further into incorporating smell, touch, and music into the product.

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Soft Model

Use of icons throughout model

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Reminder

Part of Speech: noun Definition: warning, notice; keepsake Synonyms: Admonition, expression, gesture, hint, indication, intimation, memento, memo, memorandum, memorial, note, relic, remembrance, remembrancer, sign, souvenir, suggestion, token, trinket, trophy Antonyms: forgetfulness

indication

Part of Speech: noun Definition: evidence, clue Synonyms: adumbration, attestation, augury, auspice, cue, earnest, explanation, expression, forewarning, gesture, hint, implication, index, indicia, inkling, intimation, manifestation, mark, nod, note, notion, omen, pledge, portent, preamble, prefiguration, prognostic, prolegomenon, proof, reminder, show, sign, signal, significant, signifier, suggestion, symptom, telltale, token, trace, vestige, warning, wind*, wink Antonyms: misinformation 127

Z20.4 THE NINE MOUSAI Museum Collection: Archaeological Museum of Elis, Elis, Greece Catalogue Number: TBA Type: Mosaic Context: Elis Date: C1st BC Period: Hellenistic Greek

Classic Roman and Greek Reproductions Marble Bust Torso - Heads www.recuperando.it

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A circle containing the names and symbols of Apollon, Mnemosyne and the nine Mousai: for Apollon a lyre, Kalliope a writing board, Ourania a globe, Polymneia a pensive face, Erato and Terpsikhore lyres, Melpomene and Thaleia tragic and comic masks, Euterpe flutes, Kleio scroll, and Mnemosyne the mountain of Pieria (labelled).

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Luxury Handcut Mosaics Custom designs for pools and bath Historical patterns in Opus Sectile

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Mnemosyne, Greek goddess of memory, ARTICLES Mousai, Apollon, Mnemosyne

means to dialog and to converse with each other.

Hot Greek The powers to place things in memory an that of was considered one of the most goddesses Ads by Google Art powerful Temple Gallery Greek Icons Villas Greece Singles remembrance were also attributed to this goddess. of her time. After all, it is memory, some believe, that Meet The Hottest Greek People! is a gift that distinguishes us from the other creatures Exclusive Elite Make no mistake about this. Memory was of the in the animal world. It is the gift that allows us to Photo Personals.

utmost importance at the time of Mnemosyne. Long before the invention of the alphabet and the written word, it was critical to the well-being of an individual or a society who had to rely solely on the lessons Mnemosyne was a Titaness, a daughter of the first Theoi Project Copyright ÂŠ 2000 - 2007, Atsma on in an oral history. generation of deities in Greece. Her parents were theAaronpassed rulers Cronus and the goddess Gaia. Besides, weâ&#x20AC;&#x2122;re not talking about memorizing shopping lists or the times tables here. The memory The goddess Mnemosyne is sometimes credited with of Mnemosyne was much more than that -- it was the being the first philosopher, her gift the power of memory of the rules and energies of the universe, the reason. She was given responsibility for the naming cycle of life, the memory of how to live in the world. of 128 all objects, and by doing so gave humans the reason, to predict and anticipate outcomes, and is the very foundation for civilization.

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http://www.goddessgift.com/Goddess-myths/g-mnemosyne.htm

ALTERNATE NAMES & SPELLINGS Greek Name

Transliteration

Latin Spelling

Translation Mnhmosunh Mnamosuna Mnamona Mnhmh Mnêmê Mnama Mnama Mnhmw

Mnêmosynê Mnemosyne Memory Mnamosyne Mnemosyne (Doric-Aeolic sp.) Mnamona Mnema Memory Mneme Memory Mneme (Doric sp.) Mnêmô Mneme Memory

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Pullin, Graham. Design Meets Disability Cambridge, Mass. : MIT Press, 2009.

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Midterm progress

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2nd prototype had more stable compartments. It still used Velcro but it was better attached. The prototype also had an area dedicated for toiletries that was water resistant. Sections for items were organised. 138

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Materials selected aimed to create a warmth and connection with the user, while being suitable for a hospital application. The appearance was to be homely and decorative, slightly nostalgic. 140

Lights, Music, Imagery, heat packs, and scents were also within the prototype

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Creating alternatives to screen print icons, aiming to make them more tactile, less crafty as well.

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The midterm prototype began incorporating the principles of Snozelen therapy. It included aromatherapy ( lavender for calming), lights, music, and areas for objects and photographs to facilitate reminiscing, and heat pack areas.

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Investigating new ways of making the buttons, trying to pipe clay, icing and other hybrids. Looking at embroidery and using tags.

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Where to Now

New version, better quality materials, higher finish, streamlined Snozelen aspects.

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