MD Lupus Summit by mel coop

Christopher Collins, M.D.

Donald L. Kimpel, M.D.

Jonathan D. Solomon, M.D.

Rodolfo V. Curiel, M.D.

Benjamin N. Lockshin, MD, FAAD

Tammy C. Spring, M.D.

Tara Dall, M.D.

Phong Q. Nguyen, M.D.

Alan G. Stern, M.D.

Paul J. DeMarco, M.D., FACP, FACR

Shauna F. O’Sullivan, M.D.

Donald E. Thomas Jr., M.D., FACP, FACR, CCD, Chair

Howard Hauptman, M.D.

Aarat M. Patel, M.D.

Arthur Weinstein, M.D., FACP, MACR, Emeritus

Aroti Hedge, M.D.

Lawrence K. Jung, M.D.

Michelle Petri, M.D., FACP, FACR

Rachel Kaiser, M.D., MPH, FACR, FACP

Vikram Raya, M.D.

Phillip W. Kempf, M.D.

Beth Rubinstein, M.D., MPH,FACR,FACP

Sharon Christie, R.N., Esq, Chair

Kristin B. Dufrene

Pernell Choren, Vice Chair

Pamela B. Greenberg

Sean A. Whelton, M.D.

Katy Ahmed

Courtney Bishop

M. Michelle Bradley, Secretary Kiran K. Patel, Esq. Dan Maffey, CPA, CGMA, Treasurer Priya Srinivasan

Eva Gaskins

Donald E. Thomas Jr., M.D., FACP, FACR

Akilah Hill

Susan Bateson Lori DeLorenzo John H. Axley III, CFP®, CIMA Trevor W. Williams, CPA John D. Berman Carla Davies

Cat Ianni

October 24, 2015

Dear Friend, As the new President and CEO of the Lupus Foundation of America â&#x20AC;&#x201C; DC/ Maryland/Virginia Chapter, I welcome you to the 28th Annual Maryland Lupus Summit! I am delighted to be part of this organization and look forward to working with each of you. I am excited to continue the legacy of helping the lupus community thrive with programs like the Summit. I would like to extend a special thank you to our Medical Scientific Advisory Council, Board of Directors, and guest speakers for helping us bring the Summit together. This Summit allows us to help educate and address the needs of those affected by lupus including patients, caregivers,

medical professionals, and the general public. Not only does this program allow you to learn more about living with lupus, it also allows you to connect with members of the lupus community. We hope this Summit helps you to feel empowered to take charge of your health. I am very touched by the partnership between health professionals, staff, volunteers, patients, and their families that have collaborated to make the

DMV Chapter what it is today. You have created an incredible lupus community, and it is a pleasure to be a part of it.

Sincerely,

Katy AhmeD President and CEO

8:00 AM 9:00 AM – 9:55 AM

Registration Opening Plenary Lupus Updates Dr. Michelle Petri Turner Auditorium

10:00 AM – 10:55 AM

Lupus 101 How to Live Longer and Better With Lupus Dr. Donald Thomas Turner Auditorium

10:55 AM

Drawing for the Giveaway The Lupus Encyclopedia Turner Auditorium

11:00 AM – 11:15 AM

Tai Chi Demonstration Jeff Zukor Turner Auditorium

11:15 AM – 12:10 PM

Breakout I Prevention of Heart Attacks and Strokes Dr. Tara Dall Tilghman Auditorium

Breakout II Stress Reduction to Decrease Flares Dr. Howard Hauptman Miles Room

12:15 PM – 1:00 PM 1:00 PM – 1:55 PM

Lunch

Breakout I How to Get the Most out of Your Doctor Visits Dr. Jeffrey Potter Tilghman Auditorium

Breakout II Lupus and Navigating the Disability Process Sharon Christie, Attorney Miles Room

2:00 PM – 2:45 PM

Breakout I Patient Perspective Panel Sara Gorman, Lorena Lues Julie Samuelson, Dr. Sean Whelton Tilghman Auditorium

Breakout II Lupus and You: Insights and Opportunities Dr. Robert R. Johnson Miles Room

2:50 PM – 3:00 PM

Closing Remarks Turner Auditorium

Join us for an introductory Tai Chi class where you will learn how the practice of Tai Chi can be beneficial to everyone especially those suffering from chronic diseases. Discover why Tai Chi has been shown to reduce stress, improve balance, increase vitality, promote relaxation, improve circulation, and reduce the symptoms of arthritis along with other benefits. Everyone can join in or you are welcome to sit and watch, listen, and learn about Tai Chi. Presentation will focus on understanding those factors that put lupus patients at risk for heart disease and diabetes, also discuss cutting edge laboratory technologies that can help provide a window into risk for disease years before it manifests. We will discuss many misconceptions in the media about the role of cholesterol and treatment options. We will incorporate key clinical pearls from many years of practice to help patients restore health and improve function. This session is designed to assist patients and their loved one in coping with the hardships of living with chronic illness while, understanding the impact that stress can have on their disease. Managing stress can result in a improved quality of life, improved self -esteem and has a positive effect on lupus flares.

A great deal is happening in lupus-related research. This presentation will update participants on recent research developments and their impact on those affected by lupus. This session will provide an overview of current lupus research and the prospects for the future of lupus treatments. Come and learn how to better manage your lupus and make knowledgeable decisions regarding your treatment plan. Attendees will learn about the types of disability programs available through Social Security, how social Security defines disabled, the steps in the process from filing an application to having a hearing with a judge, what evidence is needed to win a case and what benefits are available once the case is won. This panel will give attendees the opportunity to hear stories and experiences from speakers who are diagnosed with lupus themselves. After introductions attendees are encouraged to ask the panel all of their questions. A discussion on Fibromyalgia that centers around achieving optimal wellness as opposed to treating fibromyalgia like a disease. This discussion will include facts about what is fibromyalgia, what fibromyalgia is not, currently recognized effective therapies, and as well as outlining a holistic wellness based approach.

The professor of Medicine in the Division of Rheumatology and Director of the Lupus Center at the Johns Hopkins University School of Medicine and Johns Hopkins Hospital in Baltimore, Maryland. She earned her medical degree from Harvard Medical School in Boston, Massachusetts, and completed her internship and residency in Internal medicine at Massachusetts General Hospital. Thereafter, Professor Petri completed her Postdoctoral Fellowship in Allergy, Immunology, and Rheumatology at the University of California, San Francisco. She subsequently earned her master’s in Public Health and Epidemiology from Johns Hopkins University Bloomberg School of Public Health. He research focuses on several aspects of systemic lupus erythematosus (SLE), including atherosclerosis, antiphospholipid syndrome (APS), lupus nephritis, and pregnancy.

The Chair of the Medical and Scientific Advisory Council of The Lupus Foundation of America DC/MD/VA chapter. He is in private practice in Greenbelt and Clinton, Maryland, caring for patients with the entire spectrum of rheumatologic problems. He also has a special interest in treating people who have lupus. Dr. Thomas has been an Assistant Professor of Medicine at the Uniformed Services University of the Health Sciences in Bethesda, Maryland since 1995, and he regularly speaks for nonmedical groups as well. He enjoys teaching and is passionate about empowering people to learn to combat their medical problems, which eventually drew him to write the patient education book “The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families” published by Johns Hopkins Press.

A board certified lipidologist with roots in family medicine and training at the University of Wisconsin Madison. She has spent the last 15 years using advanced biomarker testing in the clinical care of patients to prevent heart disease and diabetes. For 3 years she served as Chief Medical Officer of Virginia based Health Diagnostic Laboratory co-authoring research focused on using cutting edge laboratory medicine to identify disease years before traditional testing identifies it. She continues to practice medicine as a physician founder of AvanceMD Concierge in Richmond, VA. She focuses on understanding the root cause of diseases and how our environment and our genes interact to create balance or imbalance in order to create personalized prescriptions for restoring health.

Attended St. George’s University School of Medicine and completed his residency at Greater Baltimore Medical Center. Dr. Hauptman then went on to complete his fellowship at the Medical College of Virginia Hospital. Currently, Dr. Hauptman specializes in rheumatology at the Greater Baltimore Medical Center.

The Clinical Assistant Professor at the University of Virginia Health System in Charlottesville, VA. He earned his medical degree from Howard University College of Medicine in Washington, DC, completed his residency in Internal medicine at Howard University Hospital, and completed his fellowship at New York University in New York, NY. His previous work includes being an Attending Physician at the United Medical Center in Washington, DC and the Continuity Clinic Chief Resident at Howard University Hospital.

Attorney, nurse and advocate for people who are too sick to work but too young to retire and need disability benefits through Social Security or SSI. She represents disability clients throughout Maryland, the District of Columbia, Delaware, Virginia, and Southern Pennsylvania. Sharon represents many clients who suffer from lupus. She also serves on the Board of the Lupus Foundation, DC/MD/VA chapter.

A native of Indiana and graduate of the University of Notre Dame. She was diagnosed with systemic lupus at the age of 26. Determined not to let lupus rewrite her plans for the future, she fought to maintain her demanding work schedule, busy social life, and invincible attitude. But after four years of running her body into the ground, she realized she was fighting life, not living it. Committed to working with the disease rather than against it, she made it her top priority to start living well, despite lupus. Her book, Despite Lupus: How to Live Well with a Chronic Illness, details the steps it took to reach that goal. Letting go of her career, postponing plans for pregnancy, and cutting off her hair are just a few of the monumental steps she took to reach her goal of living well, despite lupus. She continues to blog about living well with a chronic illness at Despitelupus.com.

Founder & CEO of Utopia Wellness Health Coaching and Yoga. She has over 14 years of experience as an educator and practitioner of Health & Wellness. Her life’s work has been dedicated to educating individuals to physically and psychologically live with chronic health conditions. Lorena’s holistic approach to improving disease is to decrease behaviors that increase chronic inflammation in the body by incorporating mind, body and spirit in the healing process. Some of her unique coaching methods include nutritional modification, movement, illness perception, yoga, and healthy human interaction. She is the current co-chair for John Hopkins Hospital’s Center to reduce cancer disparities advocacy group and a member of the LFA's patient services committee. She has also worked as an Epigenetics researcher at Johns Hopkins. Her training includes a certification as a Holistic Health Coach and Kripalu Yoga Instructor. In addition, she has a Master’s degree in Rehabilitation specializing in Psychiatry. The origin of her immense passion, knowledge and education stem from her personal 19-year battle with an autoimmune disorder.

An associate professor of medicine and the internal medicine residency program director at MedStar Georgetown university hospital. He chose the specialty of rheumatology after working with lupus patients at his father's clinic and after working with Dr. Michelle Petrie at Johns Hopkins while he was a college student. He graduated from Tulane university school of medicine and has completed his residency and fellowship in rheumatology at Georgetown.

Attended University of Pittsburgh and completed his residency at the Naval Hospital and Rheumatology Fellowship at the Medical college of VA, VCU. He has spent 28 years of his career in the Navy as Chief of Rheumatology Portsmouth in Naval Hospital, VA. Dr. Johnson is a past Advisor to the Surgeon General of the Navy for Rheumatology. Also, he is the Past president VA Society of Rheumatologists, Fellow of the American College of Physicians and Fellow of the American College of Rheumatology. Currently he is located in Roanoke VA as Head of Rheumatology and Associate Professor in medicine at Virginia Tech - Carilion School of Medicine.

BE PASSIONATE! END LUPUS! We are hosting the 7th Annual Purple Passion Gala to End Lupus on Saturday, November 21 at The National Press Club in Washington, DC. This event is an annual favorite that raises money for our Patient Navigation Program through a black tie gala dinner, silent and live auction, and live music. Mark your calendars for a night of fun that many use to start their holiday shopping. Sponsorships are still available, and we are always accepting auction donations. Email us at CBishop@LupusDMV.org for more information.

Payroll deduction is a simple, easy way to give. Your payroll donation keeps our patient programs running all year long and is instrumental in providing robust resources to our patients. You can donate to LFA-DC/MD/VA by indicating the numbers to the right on your donation form.

Our certified patient navigators offer personalized assistance to answer questions and help members of the lupus community overcome obstacles associated with the disease. Give us a call, we are here to provide answers, hope and support.

Support sessions are led by trained professionals who understand the obstacles

associated with chronic illness. Support groups offer members of the lupus community the opportunity to interact in a safe, friendly environment. In-person and online support groups are offered throughout our service area.

We offer in-person workshops and teleconferences to educate the community about all facets of lupus. Educational topics include living well with lupus,

financial planning, disability eligibility, nutrition and exercise, and specific organ system involvement.

These comprehensive events are offered 3 times a year in each major city that we serve. Summits provide education and connection to members of the lupus community and provide patients and families with tips and tools to live well

with lupus.

Support groups are designed for participants to exchange information, develop coping skills, and learn tips to manage chronic illness, all within a safe and friendly environment. Our 15 face-to-face support groups are led by trained professionals who understand the challenges associated with lupus. Pre-registration is not required. Check our website for dates, times and locations.

Washington Hospital Center

Annapolis

Sibley Hospital

Baltimore (2) Bel Air Clinton

Alexandria

Columbia

Reston

Greenbelt

Richmond

Rockville

Virginia Beach

Silver Spring

Receive the support you need without ever leaving your home. You can share feelings, exchange information, develop skills, problem solve, and make decisions all within a safe and friendly environment. Join others like you who live with lupus. The group is facilitated by a licensed, clinical social worker, free of charge, and open to those 18 years and older. All you need is an email address!