2015
s n o i t c e n n o C
Patient stor ie upcoming eve s, and exciting nts development new s
Welcome!
It’s an exciting time here at Phyllis Tuckwell, and we’re keen to tell you about the recent expansions and improvements which we have made to our services.
The Beacon Centre The most important and exciting development to have taken place recently is the transfer of Guildford’s Beacon Service to Phyllis Tuckwell, on April 1st. Patients and relatives across West Surrey and North East Hampshire will now have one combined service for supportive and end of life care, whether at the Hospice, at the Beacon Centre, or in their own homes. This transfer will enable our clinical teams to work together to build on an already strong service, providing the best possible Hospice Care to patients, wherever they want to be. This important change has prompted us to adapt our logo and branding - turn to page 5 to find out more.
At the Hospice We would like to thank Cathy and Claire, two of our patients, who share their own personal experiences of the Hospice on pages 3 and 6-7. We hope their stories give you an insight into life here from a patient’s perspective.
Broadening our care New staff and volunteers, along with Storm - our new support group for teenagers - have enabled us to increase the care we offer to our patients and their relatives. Find out more on pages 4-5.
Plans for the Future 2015 will see the development of our community services of Hospice Care At Home and Hospice Home Support, as they are strengthened and extended to patients not currently under our care. We will also expand some of our core services, such as counselling, and diversify our bereavement services. Last year’s building work has given us our wonderful new Dove Lounge, where Day Hospice is held three days a week. Our art therapy group also uses this space, and we would like to broaden its use further still, to support more patients and their families. With further plans to work more closely with other local end of life providers in the area and to widen our range of income generation activities to support all of this work, it looks like it’s going to be a busy year! Of course, we couldn’t have made any of these improvements without the generosity of our local community, so thank you to all those who have helped support Phyllis Tuckwell. Best wishes
Sarah Brocklebank (Chief Executive)
Phyllis Tuckwell, Waverley Lane, Farnham, Surrey GU9 8BL 01252 729400 www.pth.org.uk PhyllisTuckwellHospice @PTHospice Reg Charity No. 264501
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Helping Patients Like Cathy Thanks to the generosity of our supporters, and with help from a government grant and a restricted Trust, our Day Hospice is now housed in The Dove Lounge - a new light and spacious area - where patients such as Cathy Poynter can meet, socialise and take part in activities. Five years ago, a virus attacked Cathy’s lungs, causing them to collapse and leaving Cathy unable to walk or talk without becoming breathless. She has been coming to Day Hospice for just over a year now, but during one of these visits suffered an attack which left her unable to breathe at all, and was admitted to our In-Patient Unit. “The nurses were absolutely terrific,” she says, “but I was very ill. If I’d been anywhere else, I wouldn’t have pulled through”. Cathy stayed at the Hospice for three months. “I was in an awful state,” she remembers. “I couldn’t do anything for myself, so they did it all for me. They used to wheel my bed out to the garden, so I could enjoy the sunshine.”
Cathy has now returned home, but still visits Day Hospice. “People can find my condition quite daunting,” she says, “but here they make me feel like a normal person. It’s such an uplifting place to be.” With help from the physiotherapy team, Cathy is now able to walk short distances again. She has attended relaxation classes and healing sessions, and has found massages particularly beneficial. Phyllis Tuckwell staff have also helped Cathy with housing, rent and benefits. “They took away all my external worries,” she smiles, “I can’t tell you what a relief it was. I had been trying to do it all myself and was getting nowhere.” When asked how being at the Hospice makes her feel, Cathy smiles. “It’s the one place you can go and totally be yourself. You don’t have to put on a front and say you feel fine when actually you don’t. I wouldn’t be here without this place. They go over and beyond their job - they’re marvellous!”
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We're Always Looking To Help More People Take a look at some of the latest improvements and additions to our services…
New Recruit to Day Hospice
Making Wishes Come True
To ensure that our Day Hospice patients get all the social support they need to retain their independence and remain living at home for as long as possible, we have recruited an additional Social Work Advisor. Sarah Davis will help with everything from arranging for carers’ visits, to ensuring that patients are getting the correct state benefits.
Joan Juniper is one of several new volunteers who have recently joined Phyllis Tuckwell, and is helping out as an In-Patient Visitor.
Sarah’s role is only part-time at the moment, but with the help of the donations we receive, we are hoping to increase her hours later in the year, to ensure that she has time to meet the needs of all of our Day Hospice patients and their families.
Wellbeing Workshops
Our popular Wellbeing Workshops offer patients a range of method s and techniques to help them manage the symptoms caused by their disease or treatment. These stand-alone sessions cover issues such as fatig ue, sleep, stress and anxiety, breathin g techniques and massage. Patients and carers are welcome to attend all of the sessions, or choose those most relevant to them. We have been running these sess ions for several years and have received a great deal of positive feedback from those who have attended.
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“I make wishes come true,” Joan explains. “I ask patients what they would like to do, and then try to make that happen.” So far Joan has helped one patient write letters to her friends, and another write birthday cards for his children. With the help of a tablet computer, she can enable patients to shop without leaving IPU, or can take them on trips away from the Hospice. Joan’s background is in nursing - she worked as an A&E nurse at the Royal Surrey County Hospital before becoming a senior tutor at the University of Surrey. Her first volunteering role here was as a bereavement counsellor for adults and children, and a helper at the Little Rays group. She has since attended a five-day training course to prepare her for her new role as an In-Patient Visitor. “It’s about giving patients their identity back,” she says. “But it can also be as simple as making relatives a hot drink while they sit with their loved one. Allowing them to stay by their bedside, holding their hand and just being there, is very important.”
The Calm in the Storm
nsellors, Organised and run by trained cou h whic p, grou Storm is our new support rs age teen to port sup and ip offers friendsh under n bee has one d love or nt pare whose our care.
and The group meets every six weeks vity acti an with ing combines socialis such as bowling, rock-climbing or day paint-balling, giving a focus to the t in men iron env l rma and creating an info elop dev can g ndin atte e thos h whic s. nce erie exp friendships and share of This group completes our family for s Ray e Littl from ps, grou support s for 5-12 year olds, to coffee morning se plea list, full bereaved adults. For a k rg.u visit www.pth.o
High Patient Satisfaction Storm go paintballing
A New Look! The transfer of the former Beacon Service to Phyllis Tuckwell from April 1st 2015 means that an increasing amount of the care we give will be carried out away from the Hospice building. Because of this, we have decided to take the opportunity to update our brand and logo. It’s only a small change, but we will now refer to ourselves simply as ‘Phyllis Tuckwell’, offering ‘Hospice Care’ wherever it is needed - at the Hospice, at the Beacon Centre, in the community, and in patients’ own homes. You will start to see the new logo in use as we produce new communications. We hope you like it!
For the last four years we have produced a Quality Account, outlining our key achievements during the Financial Year and providing a summary of what we have been doing to improve our services. Patients and their families remain at the heart of what we do and we are proud of our strong track record and high levels of patient satisfaction. However, we are not complacent, and have in place a robust and long-established programme which takes a critical review of all our clinical work, seeks improvements and oversees service developments. If you would like to receive a copy of our Quality Account, or the Annual Review, which gives a detailed breakdown of our services and achievements over the last Financial Year, please contact the Hospice on 01252 729400.
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Keeping Patients
possible, Liz has had to plan well in advance, to ensure that each new piece of equipment is in place and ready for Claire before she actually needs it.
As well as helping us to care for patients at the Hospice, we also visit those living at home, giving them practical advice and physical care, so that they can remain at home for longer than might otherwise be possible. Over the last year Liz Faulkner-Manning, one of our senior Occupational Therapists, has been helping patient Claire Brown to manage the symptoms of Motor Neurone Disease, a progressive condition which attacks the nerves in the brain and spinal cord, stopping messages from reaching muscles and leading to muscle wasting. “The first thing Claire asked me was whether she could stay living at home,” Liz smiles. “Which meant we had some work to do!” To make Claire’s wish Page 6
Among the first items which Liz provided were a raised toilet seat, a pressure-relieving mattress topper and a perching stool for the shower. She also gave advice on the wheelchair and stairlift which Claire sourced privately, recommending those which would be most suitable and putting Claire in touch with suppliers. As Claire’s condition has progressed, her needs have changed, and she and Liz are now planning for the time when she will be restricted to the ground floor of her house. Liz has arranged for a hospital bed to be ordered, as she and Claire plan to convert Claire’s dining room into a bedroom, and has advised Claire on fitting a ramp which will enable her to bring her wheelchair indoors. In addition to this, Claire has had a downstairs shower room installed, and Liz has co-ordinated discussions with Surrey Heath Social Services regarding funding for a shower chair and ramp. She is also liaising with their
Independent “It’s the Hospice which has given me the courage to do all this. The care and services they offer are custom-built for each person. They tell me I’m doing the right thing, and give me help and advice.” Claire Brown Occupational Therapists to arrange for an overhead hoist to be installed in the house, which will enable Claire to move from bed to wheelchair, to shower chair, to armchair on her own.
thinking ahead, she has managed to keep pace with Claire’s progressive illness and ensure that when Claire needs a new piece of equipment, it is ready and waiting for her.
With Liz’s help, Claire has applied for Continued Health Care Funding, which now pays for a carer four times a day, with three overnight stays a week. This means that Claire has help getting washed and dressed in the mornings, accessing the computer so that she can keep in touch with people via email – as her weakening throat muscles are making speech, and therefore telephone conversations, more difficult – and putting on her ventilator mask at night. Liz has also referred her for a Specialist Services Assessment for funding for environmental controls such as turning lights on and off, and calling her carer during the night.
Our OT team, along with all the other teams here, are funded by our supporters. So when patients like Claire ask if they can stay living at home, we are able to answer with a resounding yes!
Although we have been able to supply Claire with some pieces of equipment and offer advice on others, much of Liz’s role has been to co-ordinate services and refer Claire to other organisations for help with funding. By constantly
Liz and Claire test out the new ramp!
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Recent Events and Activities Party Fever!
met A red carpet, a star-lit ceiling and a live band at ight Midn our the 1,500 guests who attended Monte Carlo Christmas parties. After a three took lists aeria and rmers perfo fire , meal course ems, to the floor before making way for the dodg all to you k Than ! waltzers, casino and disco d those who supported these parties and helpe us to raise a fantastic £34,000!
Lighting Up the Night
The care which we give doesn’t stop at our patients. We also offer counselling, run support groups and organise events for relatives and carers, both before and after bereavement. One of these events is our much-loved Light Up A Life service, which takes place every December around the Christmas tree in the Hospice grounds. Last December over 800 people gathered for this service, during which the lights on the tree were switched on, in memory of those we have loved and lost.
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Dash Raises Cash! Over 820 fabulous fundraisers joined together in September to take part in our first ever Dash of Colour!
Santa's Little Helpers Over 4,500 pupils and staff took part in our Reindeer and Elf Runs in December, which this year were sponsored by Andrew Lodge Estate Agents. Wearing either reindeer antlers and red noses, or elf hats and ears, participants ran sponsored laps of their playgrounds and playing fields to raise an incredible £39,000! If you know anyone who would like to join us in 2015, do let us know!
Held at Frimley Park Lodge, the Dash saw our sporty supporters don white t-shirts before embarking on the 5k route, during which they were showered with powder paint, to celebrate the colour which Phyllis Tuckwell brings to peoples’ lives. Ending the route covered in a rainbow of colours, they welcomed in our new event in style, raising over £41,000. Join us for this year’s Dash of Colour on Saturday 5th September at Frimley Lodge Park.
Events Diary April
Hospice Plant Sales 1st Sunday of each month April - October 10am-1pm Phyllis Tuckwell Hospice
Plants for sale at bargain prices - all proceeds to Phyllis Tuckwell
Farnham Classic & Vintage Car Show* Sunday 12th 10am-4pm Central Car Park, Farnham Free entry - donations welcome
Quiz & Fish & Chip Supper* Saturday 25th 7.30pm URC, Fleet Tickets: £15
May Farnham Duck Race* Saturday 2nd 12pm first race Gostrey Meadow, Farnham
June continued
Summer Solstice Celebration*
Sunday 21st 12pm-9pm Gostrey Meadow, Farnham
Kindly organised by My Mojo Rocks
July Picnic to Music in the Park* Saturday 11th & Sunday 12th King George V Playing Fields, Farnborough Saturday 11th - Counterfeit Police & Counterfeit Stones Sunday 12th The Magic of Motown £17 (until 31st May) £20 (from 1st June) £30 on the day entry (Accompanied children U12: free) Kindly organised by the Rotary Club of Farnborough
August
Walk for the Wards -
Samfest Saturday 8th Tongham Recreation Ground, Tongham
Sunday 10 from 9.30am Crondall
London Triathlon Saturday 8th & Sunday 9th
Kindly organised by the Rotary Club of Farnham Weyside 5 & 10 mile route th
Start/Finish - Crondall Village Hall Registration: Adult £12 Child (U14): £5
June Strictly Dancing featuring BBC’s Aljaž Škorjanec & Janette Manrara Friday 12th 7.30pm Lakeside, Frimley Green Dance Floor: £35 Front Row: £30 Standard: £25
Phyllis Tuckwell Golf Day Tuesday 16th 1pm North Hants Golf Club, Fleet 4 Ball Stableford: £320 per team £400 if also sponsoring a hole
Guildford Cathedral Abseil Saturday 20th Registration: £30 Min sponsorship: £220
www.samfestmusicfestival.co.uk
Registration: £50 Min sponsorship: £500
The White Dove Collectors Transport Show Sunday 9th 11am-5pm Kingsley Sports Ground, Bordon www.whitedoveevents.org.uk
September
Dash of Colour - 5k Saturday 5th 12pm Frimley Lodge Park
Earlybird entry £16 (until 31st May) £18 (from 1st June) £20 on the day entry
Farnham Pilgrim Marathon & Half Marathon Sunday 13th Sands Recreation Ground, Farnham www.farnhampilgrim.org.uk
Make a Will Fortnight 14th - 27th
September continued Phyllis Tuckwell Corporate Golf Day Thursday 17th West Surrey Golf Club, Milford
£380 per team including refreshments and meal £500 per team if also sponsoring a hole
Skydive Day Friday 25th Netheravon - Salisbury Registration: £50 Min sponsorship: £450
October
London Abseil Saturday 10th Arcelormittal Orbit, London Olympic Park Registration: £50 Min sponsorship: £350
Hankley Common Golf Day Tuesday 13th 9.30am Hankley Common Golf Club, Tilford 4 Ball Stableford: £320 per team £400 if also sponsoring a hole
December
Italian Masquerade Christmas Party! Friday 4th & Saturday 5th FIVE, Farnborough
BOOK NOW as tickets sell very quickly! Tickets: £37.50 (includes 3 course meal, entertainment and survivor’s breakfast). Tables of 10. Thanks to Best Parties Ever we are able to organise this huge party in aid of Phyllis Tuckwell.
Save the date...
Christmas Fayre Saturday 28th November Light Up A Life Monday 30th November Santa Fun Runs 12th & 13th December
*This event is kindly being organised by supporters of the Hospice with permission from the Fundraising team. Corporate sponsorship opportunities available for all main Hospice events - please call 01252 729446 for further information.
To register, book tickets or for further information on any of these events: www.pth.org.uk 01252 729446 fundraising@pth.org.uk
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Leave more than just memories You can make a real difference to the future of the care we are able to provide, by leaving a gift in your Will to Phyllis Tuckwell. Legacies are an important part of how we continue to develop our extensive range of services - both at the Hospice, at the Beacon Centre and out in the community. They have helped us to develop our Hospice Care at Home programme, for example, as well as provide services such as bereavement counselling and support groups for relatives and carers. Leaving a gift in your Will is also a very tax-efficient way of donating money, as gifts to charity are exempt from Inheritance Tax. And if you pledge at least 10% of your estate to charity, you will also benefit from a lower rate of Inheritance Tax (36% instead of 40%) on the rest. In our Legacy Book - which is displayed in the Quiet Room at the Hospice - we record the names of all those who have left us a gift in their Will, so that their support can be recognised and remembered for years to come.
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If you would like to request more information on how you can make this special gift, please call Anna Coassin on 01252 729 446 or email anna.coassin@pth.org.uk
Save the Date! Making a Will, and keeping it updated, is one of the most important things that you can do. However, many of us just simply never get around to doing it. Phyllis Tuckwell can help you put that right. During Make a Will Fortnight (14th-27th September) a number of local solicitors will be waiving their normal Will-writing fee for the preparation of a basic or standard Will, in return for a donation to Phyllis Tuckwell. When writing your Will, of course your loved ones will come first. But once everyone else has been provided for, we hope that you might consider a legacy donation to Phyllis Tuckwell, to help us continue to provide the specialist care we give to our patients and their families.
Flying Home for Christmas Our services not only include care from doctors, nurses, therapists and counsellors, but also from our social workers, who look after the practical side of things for our patients and their families. And with their help we were able to make a special Christmas wish come true… Cancer patient Deudi Pun came to the Hospice after a flood left the property which she and her husband Dil were renting, with a lingering damp, which aggravated her condition.
So, while doctors and nurses cared for Deudi, our Patient and Family Services team liaised with airline staff and the Gurkha Welfare Association to determine whether Deudi was well enough to travel, who would care for her and where she would stay in Nepal. It was a close call, but thanks to everyone’s hard work, Deudi and Dil managed to catch their flight, and made it home for Christmas.
As Deudi and Dil - a former Ghurkha - spoke little English, staff were unsure of her symptoms. However, the Ghurkha Welfare Association helped to find a translator and, as nurses learnt more about her pain, some unexpected plans were revealed. Deudi and Dil told staff that they were part of a group of over 50 Ghurkhas who were planning to return home to Nepal, and that they had already bought their plane tickets.
Deudi Pun with her husband Dil Bahadur Pun, before their flight back home to Nepal.
Thumbs up for Christmas Fayre In-Patient Beatrice Tuncbilek gave our Christmas fete the thumbs up, after winning big on the tombola. “I love tombolas and raffles,” said Beatrice, who was taken along to the fete, held in our new Dove Lounge, by her daughter. “It’s not the winning, it’s the anticipation.”
It must have been Beatrice’s lucky day, as three of the five tickets she bought were winners! Encouraged, she bought five more … and won again – twice! “I forgot where I was! I was shouting yes!!” she laughed. “It was a wonderful afternoon. These things really cheer you up - they make you feel good about yourself.”
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