March 2023 Special Needs Living Akron/Canton

PHOTO BY MICHELLE HERDLICK

MARCH ISSUE PREVIEW

(7) Paying it Forward

(12) Important Community Connections

(23) Pictures Say Thousands of Words about Silas Steiner

(24) Cover Story > Declan Everett Carr

(30) Community Events > Royal Knights Basketball

(37) Parent Perspective > Kylie Zehnder

(40) Education Perspective > Julie Billiart Schools

(42) Non Profit Spotlight > Compassion Delivered

(44) Healthcare Perspective > Dr. Michael Thomas II

(46) Inspirational Perspective > Laranda Robinson

(50) Sponsor Spotlight > Clearview

Developmental Services

(55) Community Resources > Emily Householder Stacey

(56) Spotlight Article >

Kameryn Swanson

(59) Community Employment Success

> William “Bill” Hoiles

(60) Community Impact Q&A >

Laurie Miller

(63) Parent Perspective >

Summerly Rowlands

(64) Final Take Scan

Owner/Advertising Inquiries

Rick Miller 330-283-8462

rick.miller@n2co.com

Facebook (@snl.cak) Instagram (special_needs_cak) www.TheSpecialNeedsLiving.com

A Star is Born

Pictures Say Thousands of Words

Non Profit Spotlight

Spotlight Article

Inspirational Perspective

Sponsor Spotlight

Community Events

PAYING IT FORWARD

ANDY CAMPBELL

www.campbelllandscaping.com andy@campbelllandscaping.com

(Supports: Carve Your Own Path)

DEAN MILLER

www.facebook.com/ clearviewdsi

clearviewdsi@gmail.com

(Supports: Sharing Solutions)

GLENNA WILSON

www.charishomes.com

gwilson@charishomes.com

(Supports: Whole Latte Love Cafe)

BRANDI PINE

www.expresspros.com/ cantonoh

brandi.pine@expresspros.com

(Supports: First Christian Church)

MIKE STURDIVANT www.StarkFlavor.com info@starkflavor.com

Whole Latte

BETH STROUBLE www.stroubletrucking.com Stroubletrucking@yahoo.com Playhouse)

MONICA RANKIN

www.paragonabs.com monica@paragonabs.com

(Supports: GiGi’s Playhouse)

AKRON & CANTON SPECIAL NEEDS LIVING

The businesses shown on this page are those committing financial support to local community resources that couldn’t afford to advertise in Akron & Canton Special Needs Living magazine on their own.

Feel free to repay the generosity these local business owners are showing by giving them a Like and Follow on Social Media, a Review on Google or Facebook or if you have a need that can be met by one of these businesses, give them a call. I’m sure they will be thrilled to serve you!

This section is here to give our readers easier access when searching for a trusted neighborhood partner to use. Get to know the businesses that make this magazine possible. Please support them in return and thank them if you get the chance!

ABA SERVICES

Applied Behavioral Connections

Kristen Maple (330) 309-3133

info@appliedbehavioralconnections.com

ACCESSIBILITY & SAFETY MODIFICATIONS

JTEK Solutions Group, LLC

Jared Chevraux (330) 323-0943

www.jtekgroup.com

ACT PREP & TUTORING

Bright Minds Learning Academy

Sheila Lahoti 5368 Fulton Dr. NW Canton, OH 44646 (330) 966-7226

www.brightmindsla.us

ADULT DAY SUPPORT

Premier Approach, LLC

Christian Manns (330) 312-6909

www.facebook.com/PremierApproachLLC

ADULT VOCATIONAL SERVICES CLW (330) 546-0057

www.theclw.com

ALL ABOUT LOCAL BeLOCAL - Stark County (330) 283-8462

bit.ly/3DpSwPd

ANIMAL FENCE/TRAINING

DogWatch of Northeast Ohio

Donnie Myers (330) 915-6036

www.dogwatchneo.com

ART STUDIO

BZTAT Studios, LLC

(330) 371-3150

www.bztatstudios.com

AUTISM SUPPORT

Autism Society of Greater Akron (330) 940-1441

www.autismakron.org

BOOKKEEPING/ACCOUNTING

Paragon Accounting and Business Services, Inc. (330) 575-2291

www.paragonabs.com

CHIROPRACTIC/WELLNESS

Vogelgesang Family Wellness & Chiropractic Center (330) 818-1212

www.vogelgesangfamilychiropracticinc.com

CHURCH

First Christian Church (330) 456-2600

www.firstchristian.com

The Chapel Green

Amy Troyer (330) 315-5501

www.facebook.com/greenspecialneeds

COFFEE SHOP

Whole Latte Love Cafe (234) 360-2233

www.wholelattelovecafe.org

COUNTY DISABILITIES BOARD

Stark Board of Developmental Disabilities

Lisa Parramore (330) 479-3934

www.starkdd.org

Summit DD (330) 634-8877

www.summitdd.org

DAYCARE/PRESCHOOL

Once Upon A Daycare (330) 990-1466

DEVELOPMENTAL DISABILITY CARE

Easterseals Northern Ohio

Conor McGarvey (234) 417-0250

www.easterseals.com/noh

The Workshops, Inc

Rachel Doty (330) 497-3399

www.choosetwi.com

DISABILITY RESOURCES

REM Ohio, Inc

Jo Spargo (330) 644-9730

www.rem-oh.com

EDUCATION SERVICES

Jason’s Place

Melissa Hadnett (234) 714-9815

Facebook

Red Line Advocacy (234) 678-9622

www.redlineadvocacy.com

EMPLOYMENT/STAFFING

Express Employment Professionals (330) 239-8709

www.expresspros.com/cantonoh

ENTERTAINMENT AND FOOD

Stark Flavor (330) 704-1227

www.StarkFlavor.com

EQUESTRIAN CENTER

Pegasus Farm

Shelley Sprang (330) 935-2300

www.pegasusfarm.org

FINANCIAL PLANNING

Skylight Financial Group

Kathryn Bryan (216) 592-7319

www.skylightfinancialgroup.com

Travis DeZordo, Modern Woodmen Of America (330) 704-6211

www.reps.modernwoodmen.org/tdezordo

FRESH MEAT & SEAFOOD

Fat Daddy Meats (330) 904-0288

www.fatdaddymeats.com

FURNITURE - AMISH

Dutch Craft Furniture (330) 893-4041

www.dutchcraftfurniture.com

HARDSCAPES/ LANDSCAPES

Campbell Landscaping (330) 933-9091

www.campbelllandscaping.com

HEALTHY MEAL PLANNING/DELIVERY

Compassion Delivered (330) 575-0996

www.compassiondelivered.org

HOME BUILDER

Charis Homes (330) 224-5056

www.charishomes.com

HOME CARE SERVICES

SafeInHome - Ohio (740) 207-5800

www.safeinhome.com

HOUSE OF WORSHIP

Harvestime Temple (330) 877-6544

www.harvestimeonline.org

HVAC

Henry Heating Cooling & Plumbing (330) 364-5571

www.henryheating.com

INDEPENDENT PRIVATE SCHOOL

Wings of Change Therapy Inc

Erica Myers (234) 334-0044

www.wingsofchangetherapyinc.com

INSURANCE AGENT

American Family - Richard Corns

Haley Seifert (234) 714-2300

INTERIOR DESIGN

A & J Arrangements and Design LLC (440) 668-6388

JOB PLACEMENT SERVICES

Creative Rehab (330) 806-0497

www.creativerehab.info

Independent Employment Services

Malcolm Porter (330) 388-5778

www.independentemploy.com

MENTAL HEALTH SERVICES

Carve Your Own Path, Inc. (330) 426-7885

www.carvemypath.org

NON-PROFIT

GentleBrook

Francie Kell (330) 877-7700

www.gentlebrook.org

NON-PROFIT ORGANIZATION

GiGi’s Playhouse Canton

Megan Vance (330) 493-9114

www.gigisplayhouse.org/canton

The Down Syndrome Association of Northeast Ohio (216) 447-8763

www.dsaneo.org

PERSONAL LEGACY PORTFOLIO DEVELOPMENT

The Preferred Legacy Trust Company

Tiffany Rockstroh (330) 209-9229

www.preferredlegacy.com

PLUMBING

Henry Heating Cooling & Plumbing (330) 364-5571

www.henryheating.com

POOL WATER DELIVERY

Strouble Water Hauling (330) 877-6795

www.stroubletrucking.com

PRIVATE SCHOOL

The Golden Key Center for Exceptional Children

Gina Bannevich (330) 493-4400

www.goldenkeyschool.com

REALTOR®

eXp Realty : The Amy Wengerd Group

Amy Wengerd (330) 681-6090

www.amysguarantee.com

RESTORATION & CLEANING

Brahlers Cleaning & Restoration

Stacy Ignacio (330) 834-0008

www.brahlerscrr.com

SCHOOLS - PRIVATE SCHOOLS

Julie Billiart Schools (216) 691-8916

www.juliebilliartschools.org

SUPPORT GROUP Sharing Solutions

www.sharingsolutions.info

THEATRE

Canton Palace Theatre

Laura Strader (330) 454-8172

www.cantonpalacetheatre.org

TRANSPORTATION PROVIDER CLEARVIEW DEVELOPMENTAL SERVICES

Dean Miller (330) 224-4403

Facebook

ZOO

Akron Zoo (330) 375-2550

www.akronzoo.org

DISCLAIMER:

This publication is owned by The N2 Company and is not affiliated with or sponsored by any club, developer, or homeowners association. Articles and advertisements in this publication and opinions expressed therein do not necessarily reflect the views of N2 but remain solely those of the author(s) or advertiser(s). The paid advertisements contained within this magazine are not endorsed or recommended by N2.

Delivering Neighborhood Connections © 2023 The N2 Company, Inc.

MUST KNOW

COMMUNITY RESOURCES & CONNECTIONS

Need to know who to connect with to ask a question? This is where you find out who you need to know!

AKRON BLIND CENTER

Phone: 330-253-2555

Website: www.akronblindcenter.org

The Akron Blind Center Inc. is a membership-based nonprofit organization incorporated in 1948 to serve the blind and lowvision communities. They also provide resources, programs, services and classes for Summit and surrounding counties.

AKRON CHILDREN’S HOSPITAL

Phone: 330-543-1000

Website: www.akronchildrens.org

Akron Children’s Hospital has been caring for children since 1890, and its pediatric specialties are ranked among the nation’s best by U.S. News & World Report. With two hospital campuses, four health centers, and 50+ primary and specialty care locations throughout Ohio, they’re making it easier for today’s busy families to find the high-quality care they need.

ARC OF OHIO

Phone: 234-571-5689

Website: www.thearcofohio.org

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

AUTISM SOCIETY OF GREATER AKRON

Phone: 330-940-1441

Website: www.autismakron.org

The Autism Society is the nation’s oldest and largest grassroots autism organization committed to improving the lives of those affected by autism. The Greater Akron affiliate was founded in 1987 by parent volunteers of children with autism.

BUREAU OF SERVICES FOR THE VISUALLY IMPAIRED (BSVI)

Website: www.ood.ohio.gov/individuals-with-disabilities/ services/services-for-the-visually-impaired

MEDINA, PORTAGE, AND SUMMIT COUNTIES

Phone: 330-643-3080

CARROLL AND STARK COUNTIES

Phone: 330-438-0500

BSVI assists eligible people, beginning at age 14, with low vision and blindness by providing direct, personalized

services to assist them in finding and retaining meaningful work and personal independence. Basic services include personal and work adjustment training, vocational training, mental and physical restoration, and placement assistance.

Website: www.211.org

Serving four counties and covering 1.5 million people in Ohio, the United Way 2-1-1 Help Center provides free and confidential 24-hour access to a compassionate professional who will review your options for help, develop a plan and act as your advocate if you are faced with barriers to service. Simply dial 2-1-1 or chat with us for assistance. Se habla Espanol.

COMPASSION DELIVERED

Phone: 330-575-0996

Website: www.compassiondelivered.org

Compassion Delivered provides medically tailored nutritional meals to people coping with chronic, lifethreatening illnesses and diseases.

DOWN SYNDROME ASSOCIATION OF NORTHEAST OHIO

Phone: 216-447-8763

Website: www.dsaneo.org

The Down Syndrome Association of Northeast Ohio is a nonprofit that provides support, education, advocacy, and resources for individuals with Down syndrome, their families and the community.

GREENLEAF FAMILY CENTER (DEAF AND HARD OF HEARING SERVICES)

Phone: 330-376-9494

Website: www.greenleafctr.org

Greenleaf is a nonprofit organization that strengthens families in our community through counseling, education and support. By offering a variety of programs and services, we are here to help families with the many challenges of daily living and personal crises.

HELP ME GROW

Phone: 330-492-8136

Website: https://odh.ohio.gov/know-our-programs/ help-me-grow/help-me-grow

Help Me Grow is Ohio’s evidence-based parent support program that encourages early prenatal and well-baby care, as well as parenting education to promote the comprehensive health and development of children. Help Me Grow System includes Central Intake, Help Me Grow Home Visiting, and Help Me Grow Early Intervention.

OHIO’S PARENT MENTOR PROJECT

Phone: 844-382-5452

Website: www.parentmentor.osu.edu

It is the mission of the Ohio Parent Mentors to provide the necessary support and resources to families of children with disabilities and the professionals that serve them by connecting families, schools, and the community to the benefit of students with disabilities.

OHIO COALITION FOR THE EDUCATION OF CHILDREN WITH DISABILITIES

Phone: 844-382-5452

Website: www.ocecd.org

The OCECD is a statewide nonprofit organization that serves families of infants, toddlers, children, and youth with disabilities in Ohio, educators, and agencies who provide services to them.

OHIO DEPARTMENT OF MEDICAID

Phone: 800-324-8680

Website: www.medicaid.ohio.gov

The ODM provides health care coverage to more than three million Ohioans through a network of more than 165,000 providers. Learn more about Ohio’s largest state agency and the ways in which they continue to improve wellness and health outcomes for the individuals and families served at our website.

OHIO DEPT OF JOB AND FAMILY SERVICES

Phone: 800-720-9616

Website: www.jfs.ohio.gov

The Ohio Department of Job and Family Services (ODJFS) is responsible for managing many vital programs that directly affect the lives of Ohioans.

OHIO DEVELOPMENTAL DISABILITIES

PLANNING COUNCIL

Website: www.ddc.ohio.gov

Phone: 800-766-7426

The Ohio Developmental Disabilities Council is a planning and advocacy body committed to community inclusion for people with developmental disabilities. It is the mission of the ODDC to create change that improves independence, productivity, and inclusion for people with developmental disabilities and their families in community life.

OPPORTUNITIES FOR OHIOANS WITH DISABILITIES

Phone: 800-282-4536

Website: www.ood.ohio.gov

This state agency works to empower Ohioans with disabilities through employment, disability determinations, and independence. Amoung the many services provided, OOD is responsible for establishing and maintaining partnerships with employers.

PEOPLE FIRST OF OHIO

Website: www.peoplefirstohio.org

People First of Ohio is a statewide organization that works with state legislators and builds relationships with other advocacy groups and state agencies. These relationships promote better interaction among people who make decisions in the communities and the state.

PHILOMATHEON SOCIETY OF THE BLIND

Phone: 330-453-9157

Website: www.philomatheon.com

This organization is a gathering of blind and visually impaired people, along with sighted family and friends, with a mission and goal to help the blind and visually impaired in the community to help themselves to remain or to become able to live independently and an active member of their community.

PORTAGE COUNTY BOARD OF DEVELOPMENTAL DISABILITIES

Phone: (330) 297-6209

Website: www.portagedd.org

The Portage County Board of Developmental Disabilities exists to connect individuals and families with the services they need for health, safety, education and a high quality of life.

RED TREEHOUSE — RONALD MCDONALD FAMILY

Website: www.redtreehouse.org

Supporting the well-being of families and children with challenges, disabilities, and health care needs. Finding tools, organizations, and events in the community to meet the needs of families.

SHARING SOLUTIONS

Phone: 330-546-2001

Website: www.sharingsolutions.info

A community of parents/guardians of individuals from transition to adult age with Intellectual and Developmental Disabilities, professionals who serve the IDD community, caregivers, and policymakers. The focus is to provide information, support, and assistance to all. Everyone is encouraged to play an active role in sharing their resources, knowledge, and experiences.

SOCIAL SECURITY

ADMINISTRATION — AKRON

Phone: 800-772-1213

Website: www.secure.ssa.gov

SOCIAL SECURITY

ADMINISTRATION — CANTON

Phone: 877-255-1509

Website: www.secure.ssa.gov

The Social Security Administration assigns Social Security numbers and administers the Social Security retirement, survivors, and disability insurance programs. They also administer the Supplemental Security Income program for the aged, blind and disabled.

STARK COUNTY BOARD OF DD

Phone: 330-477-5200

Website: www.starkdd.org

Stark DD connects individuals and families with the services persons with developmental disabilities need for health, safety, education and quality of life.

SUMMIT COUNTY DEVELOPMENTAL DISABILITIES BOARD

Phone: 330-634-8000

Website: www.summitdd.org

Summit DD offers early intervention programs for infants and toddlers with developmental delays, as well as transition services for students with developmental disabilities to vocational, habilitation and retirement programs for adults.

TRIAD DEAF SERVICES

Phone: 330-768-7272

Website: www.triadds.org

TRIAD Deaf Services Inc is an agency providing services to the deaf community in Stark, Carroll, and Tuscarawas Counties. They provide support services, interpreting, leadership, deaf advocacy and education.

Have a suggestion for an important connection that could be added to this page? Email your suggestion to rick.miller@n2co.com.

DEVELOPMENTAL SERVICES

Ships and Delivers Frozen Wholesale Meats to You. We are a small locally run business and we work with local farmers to bring you the best.

We offer a variety of different bundle options. 12-month freshness guarantee. Individually wrapped USDA choice meat, vacuum sealed and packed with dry ice.

We are a small business. We are located in Massillon, Ohio. Our Storefront is open every day 8am-8pm. We offer free local delivery and Have sales representatives out every day.

We sell Frozen Wholesale Meats. We offer a variety of different bundle options. 12-month freshness guarantee. Individually wrapped USDA choice meat, vacuum sealed and packed with dry ice. Once sent out they will be received in (2) days. Please Visit Our Website For More Information:

Rick Miller Owner Mike Sturdivant Content Director

Dave Keller Ad Strategist / Client Services

Calista Fouts Social Media Ambassador

Sarah Smith Writer

Andrea Hurr Writer

Melissa Klatt Writer

Julian Curet Photographer Michelle Herdlick Photographer

SPECIAL NEEDS LIVING CONTRIBUTORS

JOE ALBERT

J. Albert Studios

Joe Albert is an expert photographer with a studio located in the heart of Downtown Canton. He has mastered the art of seeing the world through a photographer’s eye, which, as he states, means “to look for the beauty in everything.” Joe has loved getting to know his clients over the years and takes pride in having those same individuals continue to come to him for the most memorable milestones in their lives, their senior portraits, engagement photos, their wedding and ultimately their children and family pictures. Joe loves nothing more than a good whiskey and cigar and never leaves home without his camera!

LAURIE MILLER

ECHOING HILLS

Laurie Miller is the Director of Educational and Adult Service Programs at Echoing Hills in their Northeast Ohio region. She was born and raised in Canton where she attended Glenoak High School before graduating from Kent State University. Laurie attended Walsh University where she received her MBA. She has a 22-year-old son who will soon follow in her footsteps as a graduate of Kent State this spring.

SUMMERLY ROWLANDS

WWW.MY22QT.COM

Summerly Rowlands is a mom, licensed school counselor, and business owner. While raising a family of 3 in Jackson Township. She works full-time as a high school counselor and runs a website on the side to raise awareness for her daughter’s rare genetic condition, 22q11.2 deletion syndrome. The website www. my22qt.com, shares the story of her daughter’s diagnosis while also sharing her journey along the way. The my22qt mission is to raise awareness, help families cope and find understanding, and to pay it forward to the genetic divisions of children’s hospitals. If you find her on social media, you will see that she might be obsessed with snapping photos every single day of her kid’s cute faces and everything they do!

STAFF SUBMISSION

JULIE BILLIART SCHOOLS

Julie Billiart Schools are K-8 grade schools committed to providing the highest level of education and care for children of any faith who experience Special Learning Needs. They are a network of schools located in Westlake, Akron, and Lyndhurst offering unique learning environments for students with Autism, ADD/ADHD, dyslexia, and social learning differences. Julie Billiart Schools are Catholic schools that recognize all faith traditions.

DR. MICHAEL THOMAS II SUMMA HEALTH

Dr. Michael Thomas II is originally from the Northeast Ohio area and graduated from Louisville High School. Dr. Thomas received his bachelors degree from Miami University, masters degree from the University of Notre Dame Mendoza College of Business, and doctorate from The Ohio State University’s College of Dentistry. Upon completing his training at Ohio State, Dr. Thomas pursued additional training in hospital dentistry at Summa Health System in Akron, Ohio. Dr. Thomas has received extensive experience in operating room dentistry with the special needs community in sedation, surgery, and comprehensive care.

KYLIE ZEHNDER BE LIMITLESS

Kylie Zehnder was born and raised in Canton. Currently, Kylie is a mom to two beautiful girls Alaina and Avalynn. Kylie is the founder of Be Limitless and previously held a board of directors position with the KBG Syndrome Association which helps raise awareness and education for individuals with KBG Syndrome. Kylie’s mission is centered around her daughter Alaina who was diagnosed with KBG in 2016 at age 3. Kylie lives every day by the standard of simply showing kindness and doing what is right.

Beauty Belongs to Everyone

Introducing Silas Steiner simply through images

A Star is Born

MEET DECLAN EVERETT CARRBORN TO TAKE THE STAGE BY STORM

WRITTEN BY MELISSA KLATT PHOTOGRAPHY BY MICHELLE HERDLICK

Declan Everett Carr, 17-yearold North Canton native and student at Hoover High School, was diagnosed with autism. From a young age, he had difficulty with communication and learning in school; however, once he was introduced into the theater life, he excelled! Read more about his story here:

Difficulties Noticed in Toddlerhood and Beyond

Since he was a toddler, communication was always something Declan struggled with. He would speak, but

did have issues communicating his wants and needs.

“He attended speech therapy which improved his ability to communicate,” says mom, Jennie Carr. “We later learned that he has a processing disorder, meaning he needs additional time to process information. He also is extremely dyslexic and reading is very difficult for him.”

The Love for Theater Begins

The start of his love for theater began while seeing a play at the age of eight years old. When Declan shared his

interest in pirates, his family decided to take him to see a pirate play put on by Silver Star Youth Theatre.

“After the performance we talked to them about the possibility of Declan participating,” Jennie says. “He auditioned for their next production and received a role of Kaa the Snake in the Jungle Book.” Declan loved the experience!

Unfortunately, the organization didn’t perform anymore plays, so the search for a new opportunity led them to the Avenue Arts youth program!

“I contacted the directors before enrolling to let them know about Declan’s disability and any accommodations he might need, and they were more than willing to work with him.”

On Stage: He’s a Whole Different Kid!

Declan lit up on stage in the most fantastic way. In school, Declan has

difficulty reading due to his dyslexia and processing disorder, but on stage, he needs no additional assistance. He brings a tremendous energy with him on stage, fully confident in his skills! “The transformation was significant,” Jennie reflects. “Although he couldn’t read, he memorized lines with ease, he followed stage directions perfectly, and his focus was nothing I had ever seen before. Although he required an aide in school, he required no additional assistance navigating the performance and didn’t miss any cues. He was a completely different kid on stage and took great pride in his performance. He has no stage fright or anxiety on stage and enjoys the interactions with the other cast members and with the audience.”

Best Advice a Special Needs Mom Can Offer Get Your Kid Involved in Extracurriculars! Jennie

says the best thing she’s done is encourage Declan to pursue extracurriculars:

I would encourage other parents to enroll their child in an extracurricular activity. Don’t give up if it doesn’t work

The Love for Theater Begins

The start of his love for theater began while seeing a play at the age of eight years old.

The transformation was significant.

Although he required an aide in school, he required no additional assistance navigating the performance and didn’t miss any cues.

out. We tried MANY different activities before we found something he truly enjoyed. Explore your options, there are many opportunities out there.

Where Will Declan’s Journey Take Him Next?

Declan is currently participating in youth productions by Avenue Arts

Theatre in the Canton Arts District with the two people he admires most: youth directors David and Jared Sparks-Lee. With their support, Declan is pushed to his fullest potential! This will be Declan’s sixth year performing with the company. He will begin rehearsals for Little Mermaid in March. He loves musical theater and currently takes vocal lessons with Joy Life Talent Development. He has also performed over the summer with Theatre 8:15 in Green.

After high school, Declan plans on attending the Transition U program at Walsh University. We don’t know what the future holds in store, but we sure know Declan will “break a leg” at anything he puts his mind to!

We o er a variety of community activities, all of which are chosen by participants of the program. At Premier Approach you’ll enjoy a fun, friendly & relaxed atmosphere. Get out and enjoy the things you already love, while also exploring other new and exciting opportunities. SERVICES PROVIDED:

ROYAL KNIGHTS OF THE STARK PUBLIC SPECIAL OLYMPICS

Far more than just another basketball game!

WRITTEN BY JAMES CALLAN

In early 2014, I had the opportunity to attend a basketball game featuring the Royal Knights of the Stark Public Special Olympics. For months, I had been hearing stories about the Royal Knights from one of my students, Nate Manko, who was a Junior at Louisville High School and a member of the team. After hearing so much about this basketball team, myself and many of my colleagues decided to attend one of their games to support Nate and his teammates. The game was held in a small elementary school gymnasium, and by the

time we arrived, it was standing room only. I was amazed with the skill of the players, the passion in which they played the game, and the enthusiasm of the crowd. After watching such an amazing and enjoyable game, I started to wonder if we could host a Royal Knights game in the Louisville High School Gymnasium for Nate’s Senior season.

As the 2014 school year was ending, I reached out to Nate’s parents, Steve and Cheri Manko, about the possibility of Louisville High School hosting a Royal Knights

Basketball game during the 20142015 school year. We all knew how much Nate loved the Leopards, and thought this would be a perfect way for him to conclude his High School Career. Working closely with Sean Broom (Head Coach of the Royal Knights), we began making plans to host the Royal Knights at LHS on January 21st, 2015. Our goal was to provide the same atmosphere for this basketball game as you would see at any other High School Athletic event. After months of planning, the day of the big game finally arrived and the Royal Knights took the court against the Stark DD Red.

The Leopard Cheerleaders were on hand to support the players from both teams, the Louisville High School Pep Band played throughout the game to energize the crowd, and an estimated 800 students and community members packed the gymnasium to support these two amazing teams. The game was incredible and the skill

of the players electrified the crowd as the Royal Knights gained the first of many victories on the LHS Court and Nate Manko finished his high school career with two deep

3-pointers. As the game ended, those involved in organizing the event realized that this game needed to be held again, and that hopefully we could host the Royal Knights basketball team every year.

Since that first game in 2015, the Royal Knights game at Louisville High School has become an annual fan favorite. Though Nate graduated in 2015, he continues to play for the Royal Knights and looks forward to this game every year. Louisville students Rocco Degenhard and Jonah Marecek are also members of the Royal Knights and played for the team throughout their High School careers. Their play energizes the crowd and pumps up the student section. Additionally, Lucas Smith has amazed the crowd with his singing of our National Anthem before each of the games, and has joined Sophie Mercorelli, Brooklyn Wilson, and Becca Turner in helping our cheerleaders support the players. The crowd seems to get bigger with each passing installment, and typically averages over 1,000 fans. While this game began as a way to support Louisville Students, the community has adopted each of the Royal Knights players as their own.

They love to see a nice pass by Cory Amatangelo, a rebound by one of the Broom Brothers (Max, Cameron,

I was first approached about the possibility of playing at Louisville HS by James Callan, a teacher at the HS. Originally our team had two Louisville students, Rocco Degenhard and Nate Manko and I thought it was a great idea. For anyone that has coached basketball in Special Olympics, you understand that you play and practice in a lot of small gyms, so the thought of playing in a high school gym was never in my mind. As the planning took shape and the date of our first game drew closer I honestly did not know what to expect.

The first time we played at Louisville HS we played Stark DD and the gym was ¾’s filled. The Louisville pep band was there, the Louisville cheerleaders were there, the Louisville student section was packed, we found out someone was going to videotape the game it was an electric atmosphere. It surpassed my wildest dreams / expectations. I never thought that that many people would either be interested or care about Special Olympic basketball, I was 100%, unequivocally, wrong. Honestly for me, it felt like being back in high school at a home basketball game. It was freaking, great.

Since then we have played every year (except for 2021 due to COVID) and have played teams from Medina DD, Columbiana DD and Stark DD. The staff and people of Louisville have made this a night that all of our players, coaches, parents and support staff look forward to. Every year, I still have to pinch myself and shake my head in amazement that we get to play a basketball game in such an atmosphere. The gym is normally filled to capacity for this game. Friends and families of the players and coaches come and watch teachers, doctors, therapists and workers from the special needs community come out. The people of Louisville shows up, the Walsh University basketball teams is there, it has truly morphed into an annual event that brings people together and that is truly special. What is MOST important is that there is no charge but we do ask everyone to bring canned goods for the Louisville Community Cupboard. As much as we love to play helping out the Louisville community is equally or even more important for us as a Special Olympic organization.

Sean Broom Head Basketball Coach

and Tristan), or a 3-pointer by Robby Nudo. They appreciate the determination of Jim and Bill Mohler, the hustle of Tyler Cramer and Keith Hoffman, and the passion in which Mike Soehnlen and Adam Ludwig play the game. The Louisville community has come to love this team and are very proud that Louisville has become Royal Knights Country. With such tremendous support for this event, we began

searching for ways to build upon the success of the Royal Knights game to benefit the special needs community and to hopefully share this idea with other local schools. Beginning in 2019, the Louisville City School District began hosting a Transition Fair in the Cafeteria before each Royal Knights game. This Fair allows families who have children with disabilities to see all of the support available to them within the community and throughout the surrounding areas. Numerous vendors from the area attend the Fair and provide countless resources to these families as their children transition into adulthood. This also provides the district with the opportunity to showcase all of the amazing things being done by the special needs students of Louisville City Schools. Adding to the success of this game, in 2019 the Royal Knights Game was joined by WHBC who broadcast the game on their Live Stream and have returned to broadcast each successive game. In recent years, this event has also been aired live on YSN (Your Sports Network). With any luck, and with the help of the WHBC and YSN broadcasts, other communities will see what a tremendous event this has become and will consider hosting a Special Olympics Basketball game in their districts.

Overall, this event has allowed our students and community to see the talents and amazing abilities of these young men and has hopefully brought much needed attention to the special needs community. Each year that we host this game, I think back to the first time I watched the Royal Knights in 2014 and I am so grateful that I attended that game. The impact that the Royal Knights have had on our School District and the entire Louisville Community is immeasurable and we are truly blessed to have been given this opportunity.

Stark Public Royal Knights

THE HILL

BY KYLIE ZEHNDER

Watching a child overcome fear is the most amazing yet heartbreaking thing to watch. You sense their anxiety, fear, and the hope that momma can protect them. Add special needs to the batch and sometimes it can be pure magic, or total defeat. It’s a complete mystery of what you will get, but a mystery is not a reason to ever stop trying. Experiencing fun, childhood and enjoyment are things that every child deserves to embrace, unfortunately, it doesn’t always happen, and that’s ok. But every once in a while, you’ll see that magic appear.

The day consisted of appointments, from one to the next. It was a change of routine and sometimes that can just be hard to handle. There was not much time for play. But snow was on the ground and there’s just something so amazing about new fluffy white snow. Something that makes the grumpiest person want to stop and have childlike wonder, the toss of a snowball or leaving your footprints on a fresh “clean” snow patch.

The whole family finished dinner and that’s when we make the choice to all dress into snow clothes, boots, hats,

gloves, and scarves. We bundle up so much to the point that we all walk stiff-legged and wobble, but we know we will be warm. We load into the car and drive to the closest hill. It’s dark, its cold, but the hill is all lit up by the parking lot lights. There is no one else on the hill but you can see the tracks from previous sleds. You already know that it is going to be fun. We walk to the hill and look up. As we all look up I look down and see the fear take over. This hill is big, this hill is unknown, this hill will be an obstacle. Up we go, holding hands, holding sleds.

Getting to the top was the easy part, now we look down and the hill seems so much bigger than it did when we were at the bottom. But now is the time to face the fears. She insists on sitting with momma and we get ready. I grab my phone to turn on the video so we can record the first ride down. She hugs on to me, and then her anxiety monster comes in. Her anxiety monster screams no, telling her that he needs to protect her from this hill, that she can get hurt, and that this is not a good idea. She tells me over and over in her little voice “Mommy, I’m scared.” She sits on my lap and says “Mommy, I’m scared, stop.”. This anxiety monster has no boundaries as of when and how he will place fear in you. He will attempt to stop you at all costs. But you see, we are bigger than our monster, we are stronger than our monster, we are more!

Mommy has you, baby girl, I won’t let you get hurt. TRUST ME! I’ve got you. Down we go, and her head is leaning into my body, with my arms wrapped tight around her. I’ve got you baby girl. I hear her say “Mommy” again. I’ve got you baby girl. I cheer and scream in excitement, and she is quiet. I’ve got you baby girl. I guide my feet on the snow to help transition to an easy landing. I’ve got you baby girl. The end of the hill is approaching, and I hear her giggle. Mommy’s got you baby girl. We made it to the end, and she hops off my lap, and there it was her smile! And just like that she was off to run back up that hill. Mommy had you baby girl.

She tackled that hill many more times. She screeched in excitement each and every time. She now has a video of the moment she was filled with fear but told that monster to back down. She can see the joy take over and magic start to happen. She was able to take that fear the anxiety monster gave her, and tell it she didn’t need protection from the hill. She was able to tell that monster that she was safe.

She was able to tell that monster, “not today, my mommy has me”. I will forever have you, my love.

SENIOR SERVICES DEVELOPMENTAL DISABILITIES SERVICES

GentleBrook provides residential options for seniors looking to age in place.

The HomeStead: Our 49 bed assisted living and memory care facility

The Villas: Our independent living 55+ condominium community

GentleBrook fosters independence for individuals with intellectual and/or developmental disabilities by offering programs and services through our adult day programs and residential support services, including residential waiver services, and intermediate care facilities (ICF) in Hartville and West Lafayette. In July of 2022, GentleBrook will take over as the provider of adult day services for the Holmes County Board of Developmental Disabilities.

COMMUNITY

GentleBrook serves the community through two businesses in Hartville.

GentleBrook Greenhouse + Farm:

GentleBrook Greenhouse + Farm has a wide selection of beautiful bedding plants, hanging baskets, house plants & succulents. Open to the public spring through fall.

The SportsPlex: An indoor sports recreation center with a full basketball court and a 7,500 sq. ft. turfed multi-sport training facility for individual and team use.

THE GIANT LEAP TO KINDERGARTEN SETTING YOUR NEW KINDERGARTENER UP FOR SUCCESS

Special education experts at Julie Billiart Schools share tips to help families prepare their kindergartners for academic, social, and behavioral achievement.

SUBMITTED BY JULIE BILLIART SCHOOLS

Is your child ready to make the transition to Kindergarten?

Starting the educational journey with your child can feel overwhelming. Whether your child is starting kindergarten in his or her public school district or you’re considering a specialized environment, it is essential to understand whether or not your child is ready to make the leap and prepare him or her accordingly. It is important to consider:

• How to know if your child is ready for Kindergarten

• The elements of Kindergarten

• Transitioning your child to Kindergarten

• What to look for in a Kindergarten if your child has special needs

HOW TO KNOW IF YOUR CHILD IS READY FOR KINDERGARTEN

Most schools - both public and private - share certain milestones that are used to determine if your child is ready

for school. These might include school readiness, academic readiness, basic social/communication skills, and basic play skills. These are things that can be easily and intentionally practiced at home. In fact, they are things that you probably already do in some form every day. Talk to your child’s preschool or current setting about how to best prepare him or her in these specific areas!

• School readiness - imitation skills, first/then contingency, basic instructions, waiting

• Academic readiness - attending skills, sitting for short periods of time, task completion, following group instructions

• Basic social/communication skills - making basic written or non-verbal requests, tolerating the presence of multiple same or similar-aged peers, identifying objects in his or her environment, Responding to bids for attention from adults and peers

• Basic play skills - tolerating others in their space, parallel play skills, basic interest in objects, manipulating toys as designed

THE ELEMENTS OF KINDERGARTEN

When considering if your child is ready for Kindergarten, you should consider what Kindergarten entails. Here is what your first year might look like.

• Whole group learning - can they work with others

• Individual work at their desks

- can they be seated and focus on tasks and activities

• Examining reading skill setsvoice inflection, correspondence between pictures and words, word recognition

• Practicing comprehension skills - both inferential and literal comprehension

• Fine motor skillsincreased expectations with writing utensils (pencils, crayons, etc.)

TRANSITIONING YOUR CHILD TO KINDERGARTEN

If you’ve determined that your child is ready to start school, it’s important to create a healthy start for them. The spring and summer are valuable times to begin supporting your child’s transition to Kindergarten. This is an important time to investigate what your child’s future environment will look like and help them with organization, academics, and social skills. Reach out to your future school for ideas like reading, fine motor, math, writing, etc. They might be able to provide worksheets or programs for your child to practice before they start in the fall.

WHAT TO LOOK FOR IN A KINDERGARTEN IF YOUR CHILD HAS SPECIAL NEEDS

If your child has special needs, it is important to find the right environment for them. Look for flexible seating,

calming/sensory areas, breakout workspaces, and collaborative seating opportunities. From an academic perspective, play-based learning, centers that focus on academics, social, life skills, and the teacher’s process to go from parallel play to cooperative play. In your child’s classroom, the incorporation of visual supports and technology will also aid in their development and success.

If your child is ready to start their academic journey you have many options when it comes to Kindergarten. All families should find an environment that provides the structure and support their child needs to succeed. For expanded tips, check out Julie Billiart Schools’ free, recorded Kindergarten Readiness Series at www.juliebilliartschools.org/kindergarten.

Compassion Delivered

Giving someone a meal is also giving someone hope, support, and strength

WRITTEN BY SARAH SMITH

Compassion Delivered Inc. provides free healthy meals to people coping with life-threatening or terminal illnesses. The organization believes that people should not have to choose between the medical care they need or suffer from malnutrition and hunger caused by their illnesses or diseases. A meal can give hope, compassion, and strength.

Daniel and Amanda Anschutz founded Compassion Delivered in January of 2017 after the couple came to understand the challenges people have when dealing with life-threatening illnesses and the struggle to secure nutritional support. They researched organizations around the country, talked to local meal providers, and realized Stark County did not have the same services that are available in other communities.

“Time is the most valuable commodity that we cannot get back. By providing meals free of charge, we can help people make the most of the time they have by resting and engaging

with their family versus shopping and preparing meals,” said the Anschutz.

Compassion Delivered provides free, nutritional meals to people who are coping with life-threatening illnesses and diseases on a weekly basis. Each week, the recipient receives three frozen entrees and two 16-ounce homemade soups. Each entree is equivalent to two meals and includes a protein, a vegetable, and a starch. Compassion Delivered staff sources ingredients from local farms, butchers, and distributors to ensure quality and freshness. Meals are delivered frozen, allowing the recipient to eat the meal as they see fit. Compassion Delivered understands that the appetites of those suffering from illness are not like those of a healthy person, so convenience and flexibility are important. Compassion Delivered collaborates closely with community hospitals and nurse navigators to connect delivery services to those who would benefit from what the organization has to offer.

Meals crafted by Daniel, a culinary-trained chef who has worked at upscale restaurants and country clubs in the region, are delivered by volunteers who provide social interaction. Compassion Delivered prioritizes face-toface interaction and socialization with people, which along with meals, helps to ease the stress of living with a terminal illness so they can focus on resting and spending time with loved ones.

“We can’t do what we do without the amazing and dedicated group of volunteers that help make meals with Chef Daniel on Mondays and those who deliver the meals on Fridays,” said Amanda. “We couldn’t help the people we do without our volunteers.”

Each person interested in meal delivery fills out an application in collaboration with their healthcare provider that helps Compassion Delivered understand the patient’s needs and why procuring healthy meals is a challenge. A case review is done every four to six months to keep Compassion Delivered apprised of changes in health status and the ongoing need for meal delivery.

“Friday has become my favorite day because I know that my volunteer will show up with good meals and show me kindness and compassion by caring about what I am going through. That’s the best,” said Marie, a meal recipient.

Since 2017, the organization has packaged and delivered more than 25,000 meals to people fighting life-threatening illnesses. Currently, 50 families rely on Compassion Delivered to provide weekly healthy meals. They also depend on the emotional support as the volunteers and clients form a strong bond. Compassion

Delivered currently serves only Stark County but envisions serving other counties in Ohio.

The meal program costs $35 per week per client. Dedicated volunteers help prepare and deliver the meals, so most of the expenses are incurred by purchasing food and supplies. However, since the start of the pandemic, food costs are significantly higher, and disruptions in the supply chain have impacted the ability to buy the needed supplies and food. Applications have doubled, and requests from clients for additional non-perishable items have increased significantly.

To volunteer in the kitchen, deliver meals, decorate our delivery bags or write an encouragement card, please visit www.compassiondelivered.org/volunteer. To donate to provide meals at no cost, please visit www.compassiondelivered.org/ donate. Other fundraisers include the 3rd annual Swing for Change Golf Outing on Monday, June 12th at the Quarry Golf Course and the 6th annual Be the Change Gala on Friday, October 20th at the Doubletree in Downtown Canton.

“We believe that everyone undergoing medical treatment for a life-threatening illness deserves access to nutritious food, which is why we do not qualify our clients based on their age or income,” Amanda added. “We know our meals are keeping our clients well-fed and that our service is a helping hand they are grateful for in their time of need. Programs like Compassion Delivered demonstrate that meal recipients have lower healthcare costs and hospital readmission rates, less stress, and more energy.”

Compassion Delivered is located at 1320 Bel Air Dr. NW, North Canton. More information can be found at www. compassiondelivered.org or by calling 330-575-0996.

I didn’t know what to expect when I started receiving Compassion Delivered meals. But I realized right away every meal is made with love; they taste so good. It is what I needed as I was going through my treatments. I always felt relieved when I would be heading home, wondering what I would make for dinner but quickly realizing that I’d have meals already ready for me. That gave me comfort. Thank you for caring for me during this time of my life.” Denise, meal recipient.

SPECIAL NEEDS DENTISTRY: COMPASSION, WARMTH, & UNDERSTANDING

WRITTEN BY: DR. MICHAEL THOMAS II

In my area of healthcare, I have the privilege of working with individuals from all walks of life. Undoubtedly, I’ve been positively impacted by working with such diversity. However, the patients I have gained the most growth and introspection from has been those with special physical, emotional, and cognitive needs.

Unfortunately, many of these patients do not receive the healthcare they need. Most patient’s Medicaid insurance coverage does not reimburse well and therefore providers don’t accept them as patients. Furthermore, many dentists don’t receive the proper training to communicate with these patients or caregivers. Working with the special needs community requires a dentist to have a thorough understanding of a patient’s medical history, current prescriptions they are taking, and past dental interactions. Special needs patients could have sensitivities to various sensory modalities, such as sound intensity, light exposure, or tactile pressure. Considering the unique nature of each patient is what makes special needs dentistry so difficult. However, with patience and understanding, one can provide excellent care.

For parents, family members, or caregivers of special needs individuals, the best approach to establishing quality care is early in life. Creating a “dental home” where the patient is exposed to a setting in which they are familiar and feel comfortable with, is crucial. When the patient feels at ease, it is much easier to explain the purpose of why we are cleaning their teeth, removing a tooth, etc. When the level of trust increases, the need for sedation and other pharmacological intervention decreases. While sedation is important for providing care in some cases, it doesn’t necessarily always need used. Another piece of advice for caregivers is to routinely practice good oral hygiene at home. Establishing a regular routine for brushing teeth can eliminate anxiety when coming for dental appointments. Finally, creating good dietary habits can reduce the amount of dentistry needed over the course of a special needs individual’s lifetime – mainly through limiting sugar and carbohydrate snacks.

Personally, I feel most of my professional development has been through working with the special needs community. These patients have taught me each has unique gifts, potential to positively impact others, and desires the same as everyone else — to be loved and embraced. Despite their challenges, each is entitled to the same quality of care as the rest of the world. One of the most beautiful aspects of these patients is their sincerity. While many are plagued with jealousy, hatred, and pride, this patient population doesn’t look at the world that way — they don’t hold prejudices or look down upon others. Rather, they look at people as simply others a part of humanity. In some ways, I think they are the luckiest in society for not being able to see life the way so many do.

I desire to treat patients from all backgrounds but especially this kind of patient. Because many won’t see them, I plan on making it a top priority to give them the quality of care they deserve and show society how much we can learn from them.

Personally, I feel most of my professional development has been through working with the special needs community.

A STORY OF TRUE Perseverance

MEET THE (MISS) AMAZING

LARANDA ROBINSON

WRITTEN BY ANDREA HURR PHOTOGRAPHY BY: JULIAN CURET

Laranda is a true example of how perseverance and being with the right people pays off. 27 years ago Laranda was born in Youngstown and at age 7 came to live with Timothy and Pamela Wilkes in Tallmadge. Laranda has Intellectual Disabilities but has not let that stop her. A successful career in the Summit County Special Olympics Track and Field and representing Ohio in the Special Olympics at the National level, plus participating in Ohio Miss Amazing pageant are just a few of the accomplishments Laranda has had.

First let’s backtrack to when she moved in with the Wilkes family. She felt scared at that time, understandably, and had her share of challenges getting used to living with them and starting at a new school. Her now mom Pam, took time off of work to help her to adjust and her now dad Timothy loves track and field which he encouraged Laranda to try. She loved being on the track and says it changed her life. She started with the traveling track team and then participated with the Tallmadge High School team. Although she had a lot of fun with them, her disabilities made it challenging for her to have friends and caused her to struggle more than the

others. Upon the advice of her SSA, Terina Behrend, she looked into the Summit County Special Olympics track and field program and everything changed. She finally had friends who understood her and cared for her. She was finally happy. Laranda remembers winning her first track meet and everyone congratulating her and that being the best feeling in the world. With the Special Olympics, she has also been on the cheerleading squad (she’s now an assistant coach), and on the bowling and basketball teams. She was honored to be representing Ohio in Nationals and says that just having the opportunity to participate in SO has opened her up to be more engaged with people.

Another great accomplishment and story about Laranda’s perseverance is learning to drive and getting her driver’s license. She took the written part of the test many, many times over the course of 5 years. One day on their way to take the test again, Laranda told Pam that she was going to read the test herself instead of listening to the recording. She finally passed that test! She then started taking the actual driving training classes but had no success. In fact, her instructor called Pam and told her that she was not capable of driving. Laranda did not give up though! She started doing her own research and was reached with many closed doors. While watching

a documentary, a person with Down Syndrome wanted to learn to drive and he found a program that teaches people with special needs how to drive. This launched her into doing more research to see if Akron had any programs similar and she found one at Cleveland Clinic. With Pam’s help, she was accepted into the program and began taking classes twice a week. She had an amazing instructor named Donna Guigas-Siegman who took her time with Laranda and from there she was able to take the test and passed on her first try!! She is only comfortable driving to her brother’s house and the local store all just within a couple of miles, but she can do it and her entire family is so proud of her.

Laranda personally recommends people like her and those with other special needs to reach out to their local SSA or County Boards to see what activities are out there for them. “Not only are there sports but there are also dances and travel opportunities. We are with our peers, and they understand what the struggle is for them in their communities. We help each other to feel good about ourselves,” she says. She is a huge advocate for the Special Olympics community which has been just awesome for her. With SO she had the opportunity to travel to Florida for the USA Special

WE CAN ALL DO IT! WE MAY NOT BE PERFECT, BUT NO ONE IS. JUST TRY TO HAVE FUN AND ADVENTURES AND TRY SOMETHING NEW.

Olympics and that was an amazing experience for her as well. Laranda says, “If I had never taken the chance to do SO, I would not have had so many amazing things come my way. I have met so many people. I would tell anyone to just take a chance.”

Laranda is also a very active volunteer. She has volunteered at nursing homes and assisted teachers in first

grade with reading. She babysits and volunteers at many events to help with the younger children. She hopes to start a track program for younger children to share the opportunity with special needs children so they know that they too can participate and have fun. Laranda also says being involved in Miss Amazing has changed her life so much. Miss Amazing is a national talent showcase that also doubles as a self-esteem movement for girls and women with disabilities.

Additionally, she credits her mom and dad for being her rock. They may not be her biological parents, but they have taken her to every one of her events without hesitation. They are super encouraging and that pushes her to be the best she can be. She loves how competitive her family is and they have a lot of fun. Laranda does not like negative talk and tries to be kind to everyone. She wants parents and families in the local special needs community to know that “We can all do it! We may not be perfect, but no one is. Just try to have fun and adventures and try something new.”

PROVIDING OPPORTUNITIES AND SERVICES IN A UNIQUE WAY

Introducing Clearview developmental services

WRITTEN BY SARAH SMITH

Clearview Developmental Services is an agency provider that offers Adult Day Support, Homemaker Personal Care, Non-Medical Transportation, and Vocational Habilitation Services in a way that is different from most.

Clearview Owner, Dean Miller Jr. started working with adults with disabilities while studying at Walsh University. As part of his degree in business management, he spent two semesters creating a business plan focused on providing highly sought-after services in a unique way. His vision was to give adults with disabilities the same opportunities he had been given.

“Prior to this job, I had never worked with, nor had experience with, the DD population,” Miller explained. “I fell in love with this field instantly.”

Clearview was established in 2017 as a transportation company to take people to and from community employment locations and day services locations. “The need was much larger than expected since I was operating at all hours seven days a week,” said owner Dean Miller Jr. “It seemed like there were not many options for evenings, weekends, and holiday transportation. I grew faster than expected and I had to quickly hire on additional staff to assist with keeping up with the need.”

At the urging of a client, Clearview expanded its services to provide outings for fun. Homemaker personal care outings became very

popular and grew quickly. The company started offering a monthly calendar of events and now offers a calendar for the entire year. Events include concerts, professional sports games, weekend trips, and fun nights out. In 2022, overnight trips included destinations such as Hershey, PA, and Washington D.C.

“It’s great to watch the individuals work up the courage to do things they otherwise may not have had the opportunity to do, like ziplining, going to Cedar Point, or leaving their parents to go on an overnight trip,” exclaimed Miller. “All the trips are created from recommendations that are given to us each year. No idea is too big or too small; if it’s possible we make it happen. Watching the friendships and

our individuals make on these events is

memories

I love having the opportunity to give suggestions and help plan outings for everyone to attend,” said Mike M., one of Clearview’s clients. “I also enjoy meeting new friends that like the same things I do.”

incredible and we love being able to give them that opportunity.”

Expanding once again, Miller opened Clearly Everything, a vocational program for adults with disabilities was launched in September 2020. The latest service provided by Clearview offers real-life training with the goal of community employment. The company provides training in stocking, quality control, online sales, cash register experience, purchasing, and distribution. Watching the individuals accomplish work tasks they didn’t think or know they could do is most rewarding, according to Miller. In addition to work training, the participants have weekly outings and daily dance parties.

“I love coming to work at Clearview,” exclaimed Anne S., another Clearview client. “I love getting to see my friends and my staff.”

“I like that the work I’m given is challenging and I am able to learn new skills because of it,” added Nick M.

“I am very thankful for my staff,” added Miller. “None of this would be possible without us all working together as a team. Going forward, I cannot wait to see what the future holds for Clearview.”

We would love to have you join us as we celebrate our first successful year in business and share our plans for the future! Tickets are now available through March 16th and are $75.00/per person. For Tickets scan the QR code or locate the ticket link on our website and social media pages. For additional questions, please see us at the front counter, contact us at 234.360.CAFE (2233) or send us a message to: info@wholelattelovecafe.org

We are raising funds for an expansion project called WHOLE COMMUNITY We intend to add transitional services for high school students, add a public rentable conference room, complete with a coffee car t option, and another training room equipped to address individual employment goals for our workers currently in the cafe.

Vacation Anyone? Emily Can Help!

Family vacation planning with special needs accommodations in mind

WRITTEN BY MELISSA KLATT

that accommodations are available to them. We’ll help you know what’s available and how to request it. If you want to go on vacation, we want to help you find a way to not only go, but make great memories and have a blast!”

So far, they’ve helped so many families get disability accommodations at popular destinations like Walt Disney World or on cruise ships, but they’ll help you achieve that dream destination to gain amazing experiences for your whole family. They also help you get rental medical equipment while traveling, if and when you need it!

LIST OF EQUIPMENT AIDA’S ADVENTURES OFTEN CAN ASSIST CLIENTS WITH.

“I think a lot of people do not know they can request these items, often at no additional cost. For example, a lot of cruise lines will send an ASL interpreter to the kids clubs free of charge, which allows kids who use ASL to participate fully with their peers.

• You just have to request it!”

• Renting/accessing Beach Wheelchairs

• Wheelchair accessible rooms/cabins

• Special food requests to meet Dietary needs, not only for allergies but for cultural needs and sensory needs as well!

• Renting Adaptive Strollers, Scooters, or Wheelchairs

• Requesting Disability services at theme parks

challenges when planning a vacation to include your special needs family member! A lot of families don’t realize that vacation destinations have all the accommodations needed for your family member to enjoy unique experiences; they just don’t know how to ask for them!

AIDA’S ADVENTURES LLC HAS THE EXPERIENCE

Aida’s Adventures LLC has three agents on staff with the experience and specialization in working with special needs families! Their goal is to help families have amazing and memorable vacations. They can help you navigate a Walt Disney World trip, cruise, or whatever adventure you’re dreaming about for your family!

“We have lots of tips and advice on traveling with a variety of disabilities,” says owner, Emily. “We’ll help you request accommodations from the destination. I think families don’t always realize

TRAVEL DREAMS ARE MADE REALITY FOR SPECIAL NEEDS FAMILIES

The team at Aida’s Adventures LLC lives to fulfill their mission, “Travel is for everyone.” They share a recent instance of a client whose life they changed:

I had a client whose daughter always wanted to swim with dolphins, but because of her complex medical needs, they didn’t want to leave the country. They had only seen the option of swimming with the dolphins offered in the Caribbean and Mexico. We were able to help them find a great and reputable place to do that in Florida!

“I understand that traveling with a special needs family member adds, well, special needs,” Emily says. “I’ve been there! I love traveling with my son; they are some of my favorite memories with him. We would love to help your family plan a vacation to have spectacular memories to cherish!”

• Requesting ASL interpreters

A MILLION-DOLLAR BABY…LITERALLY!

Meet Kameryn Swanson

WRITTEN BY ANDREA HURR PHOTOGRAPHY BY JULIAN CURET

Kameryn had complications at birth and was born 6 weeks prematurely which caused him to be transferred to another hospital and spend time in the NICU unit. Upon being released from the hospital he had to be on an Apnea monitoring system for months and had many challenges as a baby. Apnea is breathing that slows down or stops and some babies need to be connected to a monitoring system so that their heart rate and breathing can be monitored with an alarm that will sound if the baby stops breathing. Fast forward to age 4 and Kameryn suffered a traumatic brain injury and was airlifted to Akron Children’s Hospital where he spent almost a month in the PICU in a coma and on life support. When he woke up from his coma he was transported to Nationwide Children’s Hospital in Columbus. Kameryn stayed there for 3 months

to recover and then came home and spent another 3 months attending day rehab through Akron Children’s. He had to relearn how to walk, talk and eat. He was starting all over. For years he had to have a feeding tube with thickening liquids and had to endure multiple surgeries since 2011. He is truly a miracle! His mom used to joke about him being a million-dollar baby, not knowing if that would end up being true at the time.

This past summer (2022) was the first time since 2011 that he didn’t have therapy and had minimal appointments to attend. Kameryn will always have lifelong challenges and has permanent disabilities, but now at age 16 he volunteers at a local church, participates in after-school programs, and a horse program. He can be spotted at the Tuslaw Spirit Shop selling school merchandise at sporting events.

Mom Melissa offers up the advice to be your child’s own advocate and voice.

“Never stop fighting,” she says. Melissa is always researching

ways to help him. She is currently trying to get him more involved with other people besides his family so he can work on his social skills, this is something that Kameryn loves. Melissa says to find people to talk to who are in a similar situation. “Sometimes being a special needs parent is lonely and the only people who truly understand what it is like are other special needs parents.”

Kameryn admires his Grandma Julie so much. “She is always there for me when I need someone to talk to and she helps decrease my anxiety,” he says. He loves spending the summer and days off school with her. It’s awesome that he has this great support from his family. This amazing young man hopes to get a job at Buehler’s one day.

DEDICATION DOESN’T GO UNNOTICED!

Meet William “Bill” Hoiles

Back in September 2000, Bill Hoiles was presented with an opportunity to join a work crew at S.Slesnick Co. Paper and Plastic Recyclers through TWi.

TWi contracts workers with Slesnick’s and Bill is a part of that crew. What was supposed to be a 6-month program turned into twenty-two and a half years after being offered the opportunity to try working on the line by the boss’ son. As one would say, the rest is history…

the ground, the fish came up to his eye level. It took him nearly twenty-five minutes to reel it in, and he had to walk from the pier to the shore to get it on land. He released the carp back into Lake Sippo, but not before taking a picture with the impressive catch!

Bill, congratulations on your twenty-two years with S. Slesnick Co. and TWi. Your dedication hasn’t gone unnoticed. Keep up the great work! If you see Bill out fishing at Petros Lake or Sippo Lake, stop and say “hi’! Maybe he’ll tell you about his monster catch!

Bill starts his day by getting up at 3:00 a.m. in order to enjoy his morning routine and drink some coffee before starting work at 5:00 a.m. During his work day, Bill often transports parts to trucks in need of repair or works on the line, sorting the recyclable plastic and paper from trash and bailing the recyclables for processing. Bill works 30 hours per week, Monday through Friday. Once or twice a month Bill’s job coach from TWi, Lori Shanower, stops by to check in and see if Bill needs anything. Lori helps Bill with communicating any issues he may have with his supervisors. Bill’s favorite part of the job is transporting parts to different locations. He drives the company pickup truck and enjoys being on the road. Getting up at 3:00am is a challenge, but he wouldn’t give up his morning routine for anything. According to his job coach, Lori, Bill is reliable, dependable, hardworking, and always has a smile on his face! She must be right for Bill to have such longevity with Slesnick’s.

Bill starts his day by getting up at 3:00 a.m. in order to enjoy his morning routine and drink some coffee before starting work at 5:00 a.m.

When Bill isn’t working, he enjoys the great outdoors. Bill spends his time walking at parks and bass fishing. His favorite parks are Petros Lake and Sippos Lake. In fact, a couple of years ago, while fishing at Sippo Lake, Bill caught the biggest fish of his life. He reeled in a monster carp that was nearly as big as him. Bill said that he is 6 feet tall, and with the fish’s tail on

Question and Answer session with Laurie Miller

Question: Where do you work currently?

Answer: I work at Echoing Hills. Echoing Hills is a non-profit ministry providing residential, educational, recreational, and adult services throughout the state of Ohio for people with disabilities. I oversee the educational (EchoingU) and the adult service (Echoing Connections) programs in our Northeast Region.

Question: What is your job title here?

Answer: I am the Director at both programs.

Question: How long have you been employed with your current job?

Answer: I have been here almost 6 years.

Question: How long have you been employed in this industry?

Answer: I have been in the DD field since 2001.

Question: What were your previous jobs in the industry?

Answer: Fresh out of college, I worked as a guardian representative for APSI (Advocacy and Protective Services), then I was a QIDP (Qualified Intellectual Disabilities Professional) for Rescare, I then moved on to an agency in Cleveland, Jewish Family Services, where I was the Quality Improvement and Training Manager.

Question: What other professional associations are you a member of? (Board of Director, Volunteer organizations, etc)

Answer: I am currently the President of the Jackson Township Rotary. Previously I was a member of ACHE (American College of Healthcare Executives) and completed a yearlong mentorship with a previous VP of University Hospitals. I also sit on several committees within Echoing Hills as a Chair or Co-chair.

Question: What do your day-to-day job r esponsibilities include?

Answer: I oversee the daily operations of both programs making sure staff are where they need to be, clients are taken care of and engaged in activities/learning/community involvement. I do a lot of planning and behind-the-scenes tasks also, as well as reaching out to partners within the community and building those relationships.

Question: What advice would you give to someone who is new to your field?

Answer: Be ready to roll with the changes! This is an everchanging field whether it’s federal and state regulations, staffing, clients, what you’re doing for the day-it will

change. You are dealing with people’s lives and all the intricacies that go with it, you want to make sure they, and their families get your absolute best.

Question: Do you feel like you’re making a difference in your job and why?

Answer: I do. I am a constant in these folk’s lives and that’s incredibly important to them in a field where turnover is extremely high. I also have an open door policy. During the day, while clients are at the program, if they want to come talk or just hang out in my office, I am 100% ok with that.

Question: What advice would you give to parents in your field to help navigate?

Answer: Get involved in anything and everything you possibly can for your child/loved one. Find the support groups, get to know your county board and SSA inside and out, know your provider and how the process of different places work including how the money flows. Knowledge is power and your person with DD deserves nothing but the best.

As a parent, there will always be challenges and rewards when it comes to our children. The same is true for a special needs parent but elevated to the extreme.

My daughter was born in July 2021 and diagnosed with the rare genetic disorder 22q11.2 deletion syndrome when she was 22 days old. Since then, not a day has gone by without a challenge or reward. But lately, it feels like we’re facing challenge after challenge and I want to scream out “When is enough, enough?!” If you’re reading this, you’ve probably felt the same; like life can be so unfair. My sweet and innocent daughter is nothing short of amazing, and she doesn’t deserve what is being thrown at her. In our case, she doesn’t even know what she’s facing or up against because of her young age, so when we’re told about a new diagnosis or a new surgery needed, I just stare at her and hold her – I don’t ever want to let go. The world feels too big and the unknown of what’s next feels too scary. I want to take all of her challenges away and just shower her life with rewards. At 20 months old, she’s gone through more than the average person does their entire life, and enough is enough already.

But again, if you’re reading this, you also probably know that we can’t focus on the “when is enough, enough” because the real focus needs to be on the positives, the silver linings as I like to remind myself, because without that being the focus, the worries and stressors can become too much. There really is no other choice when you’re the parent but to remain optimistic. As the mom, I am on the frontlines – it is my duty to protect my child and with that, it is my duty to stay strong for her and be there for her no matter what. But if we’re being honest, the reason I can stay so strong is because of my daughter. Her resiliency is

WHEN IS ENOUGH, ENOUGH?

BY SUMMERLY ROWLANDS, OWNER AND CREATOR OF WWW.MY22QT.COM

a force to be reckoned with. Like I said, she doesn’t even know the strength she has, but I do, and because of what she’s shown me, I know she is capable of getting through any barrier.

But that still doesn’t make it fair. I came across a saying recently that read, “I’m not sure how, but I will”, and that resonated with me deeply. Isn’t that just the total truth as a parent in general? It’s also true for our kiddos. Every time something happens or a new challenge arises, I’m the one finding myself unsure, but alas, she will conquer whatever it is. And she does.

While enough is enough, we know that this life is never going to slow down for her or any of our special needs children. There will always be new findings, new changes, new meds, new treatments; new challenges and new rewards. Let’s focus on those rewards. It’s so easy to sulk in the negative, but any win is a win, big or small. And those wins will look different for every individual. Even on the days where it feels too difficult to find the joy, look at your child, look at their smile. For me, my daughter’s smile can get me through anything. I will be her strength just as she is mine. That I will focus on.

ENOUGH IS ENOUGH, but there’s no stopping it, so always remember that God is enough, love is enough, and your child is enough. That’s the “enough” I will seek.

Visit our website, www.my22qt.com, to read more about Izzy’s condition and our story.

While enough is enough, we know that this life is never going to slow down for her or any of our special needs children. There will always be new findings, new changes, new meds, new treatments; new challenges and new rewards.

FINAL TAKE

March issue photo finish

PHOTOS CAREFULLY SELECTED BY MIKE STURDIVANT

Michelle doing Michelle things

Declan Everett Carr

Behind the Joe Albert camera

Laranda Robinson

Royal Knights Basketball

Silas & Mom

Kameryn’s friend Lonnie the Goat

Compassion Delivered Kameryn Swanson

Wings of Change Therapy, Inc. provides therapeutic day programming for youth between the ages of 5 and 21.

Our therapeutic day program provides educational and therapeutic services to children of all ability levels. The licensed therapists work alongside the intervention specialists within the classrooms and provide individual therapy.

OUR TEAM INCLUDES:

- Intervention Specialists - Occupational Therapists - Physical Therapist

- Speech and Language Pathologists - Teaching Assistants