Autism Alliance of Michigan https/autismallianceofmichigan.org/
Autism Support of Michigan https/autism-mi.org/
Behavioral Health and Developmental Disabilities Administrationwww.michigan.gov/mdhhs/ keep-mi-healthy/mentalhealth/procurement/ welcome-to-behavioral-health-and-developmentaldisabilities-administration
Michigan Foundation for the Blind and Visually Impaired Michigan Developmental Disabilities Council www.michigan.gov/mdhhs/keep-mi-healthy/ mentalhealth/developmentaldisability
Michigan Rehabilitation Services (MRS)
Capital Area Down Syndrome Association www.cadsa.org
IMPORTANT PHONE NUMBERS
911
833-633-5788
833-633-5788
517-241-3740
800-75-SEALS
Deaf and Hard of Hearing Services (DHHS) www.deafhhs.org/ Disability Determination Bureau Division of Aging www.michigan.gov/mdhhs/adult-child-serv/adultsand-seniors/behavioral-and-physical-health-andaging-services/aging-services Division of Family Resources (DFR) www.michigan.gov/mdhhs Easterseals MORC www.easterseals.com/MORC/
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Jamie Olson: Uniquely You! Magazine Area Director jamie.olson@n2co.com 248-882-8448
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269-345-1913
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Emergency Ealy On Michigan https/www.michigan.gov/mde/services/earlylearners-and-care/special-ed-05/early-on-michigan
Michigan Department of Education: Office of Special Education https/www.michigan.gov/mde/services/ special-educationMichigan Family Forum Michigan Family to Family www.f2fmichigan.org/
Michigan Foundation for the Blind and Visually Impaired Michigan Department of Health and Human Services www.michigan.gov/mdhhs
Michigan Family and Social Services Administration (FSSA) www.michigan.gov/mdhhs
Michigan State Department of Health www.michigan.gov/mdhhs
Michigan Statewide Independent Living Council (MSILC) www.misilc.org/
Medicaid Disability
MI Choice Waiver Program
National Alliance on Mental Illness
Preschool & Out-of-School Time Learning www.michigan.gov/mde/about-us/mde-divisions-andoffices/preschool-and-out-of-school-time-learning Self-Advocates of Michigan (SAM)
Social Security Administration (SSA)
Social Security Disability Insurance (SSDI)
Special Education Questions
United Cerebral Palsy Association of Michigan ucp@ucpmichigan.org
Vocational Rehabilitation Services (VR)
DISCLAIMER: Any articles included in this publication and/or opinions expressed therein do not necessarily reflect the views of The N2 Company d/b/a N2 Publishing but remain solely those of the author(s). The paid advertisements contained within the Uniquely You! magazine are not endorsed or recommended by The N2 Company or the publisher. Therefore, neither The N2 Company nor the publisher may be held liable or responsible for business practices of these companies. NOTE: When community events take place, photographers may be present to take photos for that event and they may be used in this publication.
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MEET THE UNIQUELY YOU! TEAM
PRINT IS STILL ALIVE.
Celebrating two decades of print excellence, now 800 niche magazines strong (and counting).
JAMIE OLSON Area Director & Publisher
MARIA GIANCOTTI
CHRISTIA WOODFORD Content Manager and Publication Assistant
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RON SANDISON
MELANIE YOUNG
STEVE FRIESS
MOLLY DAVID
DORENE PHILPOT PUBLICATION STAFF STAFF WRITERS
BY MOLLY DAVID
Remembering Reagan MEET THE DAVID FAMILY
My beautiful daughter, Reagan, was born in October 2000. It had been an easy pregnancy with no problems. I maintained good health and had access to excellent prenatal care. Reagan was born on time and appeared to be in perfect health. Then came her six-month pediatrician visit and things felt a bit off. She did not roll from her tummy to her back. She couldn’t support herself sitting up. As a new parent, it felt like I was worried about everything, and it was easy to feel relieved when the doctor reminded me that all children develop differently. By her nine-month appointment, I knew something was definitely wrong. She wasn’t making distinct sounds, she didn’t lift her arms to be picked up, and she couldn’t sit without support. Her pediatrician again tried to reassure me she would be fine. I didn’t agree and
found a different doctor. Reagan was immediately referred for physical therapy to help her gain strength while we figured out what the cause of her delay was. A year and many specialists later, the diagnosis came: It was Rett syndrome.
For me, there was an immediate relief to have a diagnosis. It meant there was a path forward to help her catch up with her peers. It meant we could find a solution to her problem. What I didn’t know then was she would never be like her peers. What I would learn was that my life would completely change with her diagnosis, and all for the better.
When I was pregnant with Reagan, I imagined us playing in the park, going on trips, helping her through her first break up and fights with friends, and seeing her walk down the aisle one day. I knew my vision would not match
reality perfectly, but I didn’t imagine my vision not matching reality at all. It took a lot of time, reflection, and some therapy to accept that I felt like someone took my child from me. Even though she was with me, there was a loss, and I grieved it.
Rett syndrome is a neurological disorder, almost exclusively occurring in girls. It affects all aspects of life, including purposeful hand movement, and the ability to breathe, eat, walk and sleep. I was told she could never go to school, she might be bedridden, and I would have to take care of her for the rest of her life. It was scary. It was overwhelming.
What nobody told me, though, was that having Reagan would make me a better person. I had a lot to learn and many battles to take on to make sure she could live her best life. She started school programs when she
was three years old and attended school full-time, year-round, since age five. Reagan thrived around other kids and loved the activities, even if she could not fully take part in them. She used a wheelchair for mobility; a communication device, to differing levels of success, to communicate; and eventually got a g-tube for feeding.
When Reagan was 7, I married the most wonderful man I know. Donald not only loved me but loved Reagan as if she was his own. He still jokes that he married me just so he could have Reagan in his life. Caring for one’s own child with complex health needs is difficult and sometimes feels impossible to handle. But to choose to care for and raise a child with complex health needs takes love and character that most people don’t possess.
Donald and I created a life that focused on Reagan’s care and how to
best support her without sacrificing our life. There was a conscious choice to normalize her condition. We wanted her to be exposed to the world and the world to be exposed to her. Between doctor’s appointments, therapy sessions, and ER visits, we lived life to the fullest. At age 6, she took her first of about a dozen trips to Disney World. We went shopping on Miracle Mile in Chicago, visited family all over the Midwest and east coast, and enjoyed Michigan’s “Up North.” She went to prom, enjoyed two cruises, and earned her high school certificate. She played Miracle League baseball and made friends. She laughed at her little sister, Chloe, when she would get in trouble. We soaked up the obvious joy she found in life.
Along the way, I learned a lot about myself and humanity. First, I learned humility. I watched my daughter fight
to do almost everything, including breathing. She did it with a smile on her face and mischief in her eyes. It is hard to see yourself as important in the face of such grace. I learned what it really means to love someone. I loved taking care of her and never felt like I was sacrificing anything to be with her. She filled my whole heart. I learned to not take things for granted. Every day with her was a gift. I didn’t know how many I would have and vowed to treasure every day with her.
Also, I learned that there are a lot of great, caring people in the world. Reagan had physical therapists, occupational therapists and doctors who became like family members to us. They cheered her on, helped her grow, and supported our family. When we struggled to push her up a dune at Sleeping Bear Dunes in a beach chair, some young men came to help us.
People held doors for us, and smiled and talked to her, even though she could not speak to them. There were multiple times when we were out shopping or at Disney when people randomly came up and gave us a gift for her. At Disney, one man told us he was so moved by seeing her enjoy the park that he had to buy her a souvenir. She had that effect on people.
It’s easy to focus on the hard parts of raising a child with complex health concerns. There are a lot of hard parts. I cried many nights about how unfair life can be. I yelled and complained about how difficult it can be to get the right care or to find the right specialist. I have experienced immense frustration with insurance companies and state services. It was difficult to travel, to go to a restaurant, or to leave Reagan in someone else’s care. All of that is
real, but we focused on the joy Reagan brought to our family.
Life is precious and it can change in a moment. On December 2, 2023, our lives changed. While Chloe and I were traveling, I received a call that would turn my world upside down. Reagan had passed away peacefully in her sleep. We had always been told that this could happen, but we still never expected it. No one trained me to handle this. I could handle ER visits, mysterious illnesses, and fighting with insurance companies, but I was not prepared to handle my daughter no longer being with me.
All the memories people shared about Reagan and all the cards, calls, and donations in her name reminded us of the impact she had on so many people. That was a comfort. Again, I made a conscious decision to honor Reagan’s life the best way I knew how. I didn’t worry about
what other people thought; I grieved in private. Our family went on a cruise that we had planned months prior. I didn’t care who judged us for it. We told stories about Reagan (Do you remember when she did this?), talked about how much we missed her, and had fun pointing out what she would have hated about the trip (the ocean water was too cold). For us, this kept her memory alive and allowed us to keep living. Our family will never be the same. We are still coming to terms with our new normal. Just like when I received her diagnosis, everything has changed. We are learning to find the joy in life without her experiencing it with us. We are learning to keep her in our hearts and still love life. We have made a choice to continue to stay part of the disabled community and spread information and awareness. This is our way of honoring her.
‘Tis the season to be…overwhelmed?
Sensory-friendly holiday tips from Judson Center’s Autism Connection
The holidays can be a wonderful time filled with family, friends, and celebration. But for children and youth with autism spectrum disorder (ASD), the holidays can also be a source of stress. Many children with ASD thrive on quiet, calm, and routine— things the holiday season tends to disrupt. Between flashing lights, loud music, schedule changes, and unexpected social interactions, it’s easy to see why some families might feel more like saying “bah-humbug.” But there’s hope! These sensory friendly holiday tips from Judson Center’s Autism Connection’s team will help your family survive and even enjoy the season.
1. PROTECT YOUR CHILD FROM SENSORY OVERLOAD
The holidays are full of sensory stressors. From loud music and flashing lights to strong smells and crowded spaces, it’s important to minimize your child’s sensory overload. As a parent, you can take steps to reduce these stressors:
• Say No: Evaluate holiday activities and events to see if they’re appropriate for your child. It’s perfectly okay to say no to events that might overwhelm them.
• Dress Comfy: Forget the fancy outfits or itchy holiday sweaters. Let your child wear what feels comfortable and soothing to them.
• Come Prepared: Pack a sensory kit that includes headphones, fidgets, a cozy blanket, or other items that help your child stay calm and grounded.
• Give an Out: Always have an exit plan. Knowing where to go if the environment becomes too overwhelming helps your child feel supported and you feel prepared.
2. PRESERVE YOUR CHILD’S ROUTINE
Children with autism often rely on routines to feel safe and secure. While holiday events can shake up their normal schedule, you can reduce the impact of change by preserving routines wherever possible:
• Plan the Day: Explain the day’s schedule to your child in advance. Break it down into steps or time slots so they know what to expect.
Practice the plan if needed.
• Stay Close to Home: When possible, limit travel to keep things predictable. Consider saving long trips or visits for less chaotic times of year.
• Respect Their Space: Maintain your child’s regular sleeping arrangements or sensory-safe zones. This can provide a much-needed retreat when things get overwhelming.
3. PREPARE YOUR CHILD FOR SOCIAL INTERACTIONS
Holiday gatherings can be stressful for anyone, but they pose extra challenges for children with autism. Preparing your child for these interactions will help them feel more comfortable:
• Practice Together: Talk through what to expect at events, focusing on social norms and cues they might encounter. Practice these situations together.
• Pick a Code Word: Choose a code word your child can use if they start to feel anxious or overwhelmed. This gives them a way to signal when they need help or a break.
• Practice a Rule of Ones: To simplify the season, just pick one—one event, one visit, or one new experience. This approach can reduce the pressure for both you and your child.
With thoughtful planning, sensory-friendly holiday strategies, and a bit of flexibility, it’s possible to embrace the season with joy! Your holiday may look different from others, but that’s what makes it special. As a family touched by autism, you already know that being different can be wonderful in its own way.
For more information on how Judson Center’s Autism Connections can support your family, contact us at autism@judsoncenter.org or 1-866-558-3766.
Around 50 million people across the world have conditions that leave them unable to communicate, even though the technology exists to give them a voice. Tobii Dynavox is on a mission to provide assistive communication solutions across the globe to empower people to do what they once did, or never thought possible. With a presence in more than 65 countries, including Sweden, the US, Norway, Germany, France, the UK, China, and Japan, we offer touch and gaze-based speech generating devices, eye trackers, and
TOBII DYNAVOX
AAC is any form of communication used in addition to, or instead of, speech for people with a variety of disabilities.
communication apps as well as financial support and training resources for those who use our products and the important people in their lives – parents, siblings, caregivers, teachers, and clinicians.
Our 700+ employees and global network of partners know that getting started and succeeding with AAC (augmentative and alternative communication) isn’t always straightforward. Success is a journey, we like to say. We’re here to guide you by providing the right tools and resources at the right time.
A great place to begin is learning what AAC is and who can benefit from it.
AAC is any form of communication used in addition to, or instead of, speech for people with a variety of disabilities. As a result, it is also sometimes referred to as assistive communication. It
can consist of no technology, lowtechnology, or high-tech speech devices controlled with just a person’s fingers, eyes, or other body parts. Often, it consists of all three. It can be supported with symbols and text, or just text alone.
MEET THE CLEVELAND FAMILY
BY KENDRA ROGERS, MS
Re’Mon Sr. and Yolanda Cleveland head a busy home with two children, Re’Mon Jr., 5, and Re’Mero, 1. Re’Mon Jr. has an uphill battle, thanks to being born with a rare gene mutation called GNA01.
GNA01-related disorder, also known as GNA01-related neurodevelopmental disorder, is characterized by seizures, low muscle
A TOBII DYNAVOX FAMILY
tone, abnormal movements, and developmental delays.
Ms. Monica at Beecher Early Headstart, (which Re’mero now attends), helped the Cleveland family get a diagnosis for Re’Mon Jr. He gets services at Early Childhood Program and Services (ECPS). Next year, Re’Mon Jr. will start Kindergarten at Marion D. Crouse Instructional Center and will continue to receive services from Genesee Health System (GHS) and Children’s Special Health. He will also continue physical therapy with Anne at ATI, and occupational and speech therapy at Mott Children’s Rehabilitation. Along with his mobility aids, communication devices, and orthotics, Re’Mon Jr. has a long list of services and aids to help him achieve his best life.
Re’Mon Jr.’s version of GNA01 means his body movements are challenging for him to control and may make him appear to be lashing out or hitting, which results in frustration for him and his parents. His low muscle tone makes it difficult to swallow food and for his bowels
to move properly. He requires strong medications to help his body perform what many consider “normal” functions. As a result, his parents are tasked with carrying many, heavy bags for Re’Mon Jr. to have a childhood he can enjoy. His well-being is on their shoulders at all times.
Day-to-day outings are a headache. Longer travel is even more daunting--enough medication, feeding tubes, special food, and supplies need to be packed to last for the entire trip. Preparing for possible emergencies that other families never have to worry about add another layer of complexity to travel.
Despite the challenges that present daily, Yolanda knows the happiness that comes from recounting Re’Mon’s huge accomplishments, like using his speech device, rolling a ball, supporting his own head, rolling over, learning to stand and use his gait trainer, and even feeding himself with a spoon! These accomplishments might seem minor, but they are huge to a parent like Yolanda.
Re’Mon Jr.’s initial diagnosis came in early 2020, right when Covid-19
shut down the world. Not only did the Clevelands have a pandemic to deal with, but also a son whom they needed to protect and advocate for. Yolanda shared that their local hospital was poorly equipped to handle Re’Mon’s needs, and medical staff suggested a larger hospital in a city like Ann Arbor. Then the Clevelands were told hospice was their only option as it appeared Re’Mon was too weak to recover. Instead, they chose to advocate for their son and do whatever it took to let him enjoy life. Because of the pandemic, there were no options for therapy initially, so the family did what they could at home. When they returned to appointments, doctors were shocked at Re’Mon Jr.’s progress, noting that his parents had
done immeasurably well with him in the interim. Yolanda shares that she “decided to keep Re’Mon Jr. alive AND comfortable and dedicated him back to God and left it in His hands”.
Re’Mon Jr. is getting ready for kindergarten, a milestone his initial doctors never thought he would reach. However, his immune system is immature, which means common infections make him sicker faster and for much longer. Protecting him from viral/bacterial infection is a challenge the family must now overcome along with the other challenges. Even a common cold can wreak havoc on his system, resulting in digestive issues and high fevers. Thankfully, he has a robust IEP that provides home-bound services when he cannot be in school.
Complex schedules with appointments mean that “normal” traditions like family dinners are not possible. Instead, the Clevelands make their own traditions like sharing large family meals with extended family for holidays. With a strong Christian background, faith is important to the Clevelands. Yolanda participates with the praise team at church, and worship is central to their family. Re’Mon Jr. participates in the children’s ministry by giving speeches using his communication device.
The family also enjoys museums, parks, arcades, movies, bowling, skating, and hanging out at the pool.
In addition to more travel this year, Yolanda shares her desire to help create more accessibility in the community including an adaptive playground and more wheelchairaccessible beaches. She also mentions that church aisles, handicapped parking, and schools are falling short when it comes to serving those who use mobility assistance devices. Yolanda would also like to increase the adaptive devices in their own home including a swing Re’Mon Jr. can use.
People who love your children for who they are are uncommon, Yolanda says. She is thankful for her husband, mother, aunt, and sister who treat Re’Mon Jr. as though he is worth it. This family support is so important to
Yolanda. She shares that “my peace is in Christ” so church is where she feels she is able to relax and replenish from the trials of parenting a child with complex medical needs. Journaling, date nights, and arcade games are other respite opportunities for Yolanda and Re’Mon Sr.
Seeing where her son started— unable to swallow and in the NICU for 6-weeks—and where is now— rolling a ball and supporting his own weight—give her hope for the future and for others in her situation. Yolanda encourages other parents to embrace the support offered through community organizations and fight for their children to get what they need to live a happy life. She says that even though it might not look like it “should”, it can still be beautiful if you let it be. She also encourages families to do self-care, get therapy for themselves, and get peer support from those who experience similar challenges.
SERVING WITH COMPASSION Volunteers Behind Meals on Wheels
BY MONICA SHARF, DIRECTOR OF PROGRAM SERVICES AT SERVICES TO ENHANCE POTENTIAL
Breaking barriers between adults with disabilities who are delivering meals to seniors in the community for the volunteer program Meals on Wheels involves creating a supportive and inclusive environment that values diversity and fosters meaningful connections. By providing training, resources, and accommodations tailored to the needs of volunteers with disabilities, we, at Services To Enhance Potential (STEP), ensure equal opportunities for participation and contribution. Additionally, promoting awareness, understanding, and empathy among all participants helps to reduce stigma, build trust, and strengthen relationships within the community.
Through collaboration, education, and open communication, we strive to empower volunteers with disabilities to make a positive impact, enhance their sense of purpose, and promote social inclusion and belonging for all individuals involved in the Meals on Wheels program. Most of the volunteers responsible for delivering Meals on Wheels within Wayne County are members of STEP. STEP oversees nine routes, providing meals to 120 seniors, three days a week! Services To Enhance Potential (STEP) is a nonprofit organization which provides support and services to nearly 1,400 persons with disabilities and other mental health needs in Macomb and Wayne Counties. A major goal of Services To Enhance Potential is to increase the number of persons who are employed, self-employed, and volunteer in their communities. STEP provides and supports a variety of employment and self-employment options. We were founded in 1972 to bring an employment focus to individuals with a disability and have developed a strong reputation in the community for doing so. Learn more about STEP at www.stepcentral.org.
STEP Member delivering meals
STEP Member delivering meals
STEP Member delivering meals
STEP Member delivering meals
STEP Member delivering meals
GiGi’s Playhouse Resource Fair Recap
ON OCTOBER 20TH, Uniquely You hosted a vibrant resource fair at GiGi’s Playhouse Detroit, creating a valuable day of connection and support for the special needs community. Families and community members gathered to explore a range of resources provided by dedicated organizations, thanks to the warm hospitality of GiGi’s Playhouse. Special thanks to the contributing organizations— Specialty Aquatic Programs LLC, Lori’s Literature, Live Vinted, Tobii Dynavox, Healing Haven, Michigan Alliance for Families, and GiGi’s Playhouse—for sharing information and resources with families eager to learn and grow.
GiGi’s Playhouse is a one-of-akind network of Down Syndrome Achievement Centers, providing free, life-changing programs to over 30,000 individuals of all ages across 61 Playhouse locations across the US and Mexico, and virtually in 93 countries. With a mission to ensure
lifelong support and growth, GiGi’s Playhouse empowers individuals with Down syndrome and their families by offering therapeutic, educational, and career development programs. This commitment extends from prenatal support through adulthood, empowering individuals to reach their fullest potential.
As Down syndrome remains the largest chromosomal disability in the U.S. yet receives the least funding, GiGi’s Playhouse fills a crucial need. Through the Generation G Campaign for global acceptance, they are advancing understanding and championing opportunities for individuals with Down syndrome to thrive as students, employees, friends, and valued community members.
What began with sixteen families in Metro Detroit dedicated to supporting their children has grown to serve over 600 families across Southeast Michigan. The Playhouse
model has transformed communities by providing acceptance, connection, and essential support for people with Down syndrome.
Uniquely You is grateful to partner with such an impactful organization and we look forward to more events that uplift, support, and connect the community. For more information about GiGi’s Playhouse Detroit and their free programs, visit their location at 19799 W. 12 Mile Road, Suite L15, Southfield, Michigan 48076, or contact them at (248) 557-9899 or via email at Detroit@gigisplayhouse.org.
Neurodivergent-affirming Services in Metro Detroit
Empowering neurodivergent individuals and their communities to build healthy, meaningful relationships across the lifespan that honor their unique needs and personal autonomy.
Providing classes, coaching, and groups for neurodivergent individuals and their familes and caretakers.
Delivering training and consultation for practitioners, educators, and organizations to enhance neurodivergent-affirming practices in their service delivery and workplace.
A PICTURE IS WORTH A THOUSAND WORDS! In Honor
of Special Education Teachers
Special Education Day is December 2nd, 2024. We extend a heartfelt thank you to all the special education teachers for your dedication, compassion, and tireless your students’ lives. The joy you find in helping students discover their unique strengths and
Springhill Pooled Accounts Trust is a trusted advocate in the special needs community. As professional trust administrators, we manage your assets, distribute funds for discretionary expenses, and help maintain your public benefits eligibility.
We take the time to understand beneficiaries' specific needs to determine if our trust is the best option for their long-term goals.
• Unparalleled Client Advocacy
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Jennifer Groh-Johnson
JENNIFER GROH-JOHNSON Woodsedge
MY favorite part of being a special educator is seeing how much my students grow. It’s amazing that when we give them the right tools they are capable of doing amazing things.
Special Education and Civil Rights Laws and Their Importance in Advocating for Your Child
BY MARIA GIANCOTTI, M.ED - STUDENT ADVOCACY MICHIGAN
Navigating the special education system can be overwhelming for parents, especially when their child has unique learning needs that require individualized support. Understanding the laws that govern special education services is essential for effective advocacy. These laws provide the foundation for the rights of students with disabilities and ensure they have access to the services they need for a free and appropriate public education (FAPE). In this article, we’ll break down key laws related to Individualized Education Programs (IEPs) and discuss how they empower parents to advocate for their child’s educational rights.
1. The Individuals with Disabilities Education Act (IDEA)
The Individuals with Disabilities Education Act (IDEA) is the foudation of special education law in the United States. IDEA ensures that students with disabilities have access to FAPE in the least restrictive environment (LRE). IDEA mandates that public schools identify, evaluate, and provide services to students with disabilities through an IEP.
An IEP is a legally binding document that outlines a child’s specific learning needs, goals, accommodations, and the services the school will provide. Under IDEA, parents have the right to participate in the development of their child’s IEP and challenge decisions they disagree with through a formal process, including mediation and due process hearings.
2. Section 504 of the Rehabilitation Act
Section 504 of the Rehabilitation Act of 1973 is another key law that protects students with disabilities. While IDEA focuses on students with specific disabilities that require specialized instruction, Section 504 has a broader scope. It prohibits discrimination against individuals with disabilities in programs that receive federal funding, which includes public schools. Section 504 ensures that students with disabilities receive accommodations and modifications to help them succeed in a general education setting. Students who may not qualify for an IEP under IDEA can still receive support through a 504 Plan, which outlines the accommodations needed to provide equal access to education.
3. The Americans with Disabilities Act (ADA)
The Americans with Disabilities Act (ADA) is a civil rights law that was passed in 1990. It builds on the protections established by Section 504 but extends them to all areas of public life, including education. The ADA prohibits discrimination based on disability in schools, regardless of whether the school receives federal funding.
For K-12 students, the ADA reinforces the requirements of IDEA and Section 504 by ensuring access to school facilities, extracurricular activities, and other aspects of student life. In cases where students are denied access to services, or their rights are violated, the ADA provides additional avenues for legal recourse.
4. Family Educational Rights and Privacy Act (FERPA)
The Family Educational Rights and Privacy Act (FERPA) is a federal law that protects the privacy of student
education records. Under FERPA, parents have the right to access their child’s educational records, request corrections, and control who else has access to that information.
For parents advocating for their child’s special education needs, FERPA is essential because it ensures transparency. It allows parents to review evaluations, IEPs, progress reports, and any other records that the school maintains regarding their child’s education.
Conclusion: Empowering Parents Through Knowledge
IEP-related laws such as IDEA, Section 504, the ADA, and FERPA are powerful tools that protect the rights of students with disabilities and ensure they have access to the education they deserve. For parents, understanding these laws is critical in advocating effectively for their child. Knowing your child’s rights allows you to participate confidently in IEP meetings, hold schools accountable, and ensure that your child receives the support and accommodations they need to thrive.
When parents are well-informed, they can collaborate more effectively with the school to create a supportive, individualized educational plan. Ultimately, these laws empower parents to be their child’s strongest advocate in the pursuit of educational equity.
If you need support in advocating for your child, contact Student Advocacy Michigan today at 248-372-9770 to speak to an experienced advocate. Also check out the FREE downloads on our website at www.studentadvocacymi. com including our most popular download “Must Know IEP Laws: 14 Federal Special Education Laws” before your next IEP meeting! Empower yourself and get what your child needs at school!
Local Events
BY CHRISTIA WOODFORD
Visit a Museum through Museums for All Due to COVID-19, many museums participating in Museums for All have adjusted their hours and ticket purchasing policies. Before visiting a museum, please call or check their website to see if they are open or require advance registrations. Many museums are offering virtual resources—check your local museum’s website for more information.
Through Museums for All, those receiving food assistance (SNAP benefits) can gain free or reduced admission to more than 1,000 museums throughout the United States simply by presenting their EBT card and a photo ID. Check here for participating museums. https://museums4all.org/
MUSEUMS
Impression 5
Dec. 8, 9:30 am- 11:30 am and Dec. 18, 5:30 pm- 7:30 pm
Impression 5 Science Center, 200 Museum Dr., Lansing, MI 48933
Explore your Science Center with select exhibits altered to reduce sounds, scents, and lighting stimuli. Guests can expect a limited building capacity, pop-up activity, and map designating the sensory experiences in each exhibit. Thank you to MiABLE for supporting Sensory Friendly. Admission: Regular admission prices apply. Free for members.
Many of the familiar customs that we observe this time of year have an astronomical connection. Our holiday offering explores the traditions that we associate with this special season.
Christmas Constellations
Dec. 15, 1:00 pm
When we look at the stars, we can play a giant game of dot-to-dot. We can use our imaginations to come up with amazing things from basic shapes to mythical creatures to our favorite animals. In this show, we will use our imaginations for a search through the stars for holiday themed shapes in the sky. This show is suitable for preschoolers, young elementary aged children, and their families. These shows will run with the lights up, the sound down, and the theater doors open so people can move about as needed. We also provide a place to “chill out” in our lobby. All shows include a live star talk about what is up in the sky that night. We will include a short break between the main show and the star talk. Information about what to expect during the show will be provided when you purchase tickets.
Cost: Adults, $5.50, Students and senior citizens,
$5.00, Children (age 12 and under), $4.50 Friends of Abrams Planetarium Members, Free Free with Museums For All (with valid EBT, Medicaid, or WIC card and photo ID) https://www. abramsplanetarium.org/ Programs/Sensory.html
Ella Sharp Museum Sensory Time
Every Saturday at 9:00 am 3225 4th Street, Jackson, Michigan 49203
During Sensory Friendly Hours, the Ella Sharp Museum will open its galleries at 9 a.m., an hour before the museum opens to the public. Families with members who are neurodiverse, autistic, or have other sensory processing disorders or cognitive disabilities are welcome to visit the museum for a quieter experience in a more controlled environment. Designated quiet zones will allow visitors to decompress and experience the museum at their own pace.
Before each program, families are invited to browse our “pre-visit” materials to help them prepare for their visit including social narratives and maps of our facility. These pre-visit materials are also available to help families plan for visits that take place outside of program hours and a sensory backpack is available at the front desk for use. To provide the most sensoryfriendly environment possible, we will limit the capacity for these special times to 50 people. https:// ellasharpmuseum.org/ classes-and-events/ sensory-time/
Grand Rapids Children’s Museum
Sensory Friendly Play
Nov. 4, 4:00 pm- 7:00 pm
Together with Autism
Support of Kent County, GRCM welcomes families to play in a calmer, quieter environment outside of regular Museum hours. Registration required. Various Events Scheduled
Dec. 1 - Dec. 31 various events scheduled
Grand Rapids Children’s Museum, 11 Sheldon Ave NE, Grand Rapids, MI 49503 Check calendar for Sensory Friendly evenings https:// www.grpm.org/visit/ https://www. autismsupportofkentcounty. org/new-products/ p/2024-night-at-thegr-childrens-museum
SPORTS
TheraplayYoga:
Therapeutic Playful Yoga for Diverse Abilities
Adaptive Yoga Studio, 2015 E. Michigan Ave. Lansing, MI 48912
Inclusive & Accessible Yoga for Diverse Bodies, Brains, and Abilities. Check
website for schedule. Gloria@TheraPLAYoga.com https://theraplayoga.com/
FAMILY FUN
Detroit Zoo Wild Lights
Dec.1- Jan. 5, 5:00 pm- 9:00pm 8450 W 10 Mile Rd, Royal Oak, MI 48067
Wild Lights, presented by Corewell Health Children’s, has been a treasured holiday tradition for more than a decade for a reason. At this incredible event, you’ll encounter enchanting animal-themed light sculptures that bring a whimsical touch to the festive season and create a magical experience for all ages. Be prepared to be mesmerized by millions of twinkling LED lights transforming the Zoo into a winter wonderland. Check the website for updated information https://detroitzoo.org/ events/wild-lights/ Sensory Friendly Evenings Check website for date and times
As part of our work to create accessible and welcoming spaces for all, the Detroit Zoo will turn down the music and adjust the lights during special evenings this summer.
Starting in June, the Detroit Zoo is hosting three Sensory Friendly Evenings for guests with different sensory needs. During these times, the Zoo and its attractions will be open to all visitors, but special accommodations will be in place to ensure the Zoo can be enjoyed by families and individuals of all abilities. Sensory bags and a dedicated sensory room is available for those who may need a quieter and more secure space.
Included with Zoo admission | Free for members | No event registration required https://detroitzoo.org/ events/zoo-events/sensoryfriendly-evenings/ Various fun events through the month.
Legoland Discovery Center Michigan Sensory Friendly Morning
Dec.1, 9:00 am- 10:00 am 4240 Baldwin Rd, Auburn Hills, MI 48326
During Sensory Friendly Mornings, we’ll reduce the lighting, turn off music & disable distracting stimuli for an hour before we open to the general public. This event is perfect for our friends on the autism spectrum. Sensory-sensitive adults are welcome to visit during Sensory Friendly Mornings without a child (age 16 or under) in the party until the attraction opens to the general public at 10 am. Adults who are not accompanied by a child must exit the attraction upon opening. Groups that are accompanied by a child are welcome to stay past 10 am. Tickets are limited and must be purchased online in advance for this special event. https://www. legolanddiscoverycenter.com/ michigan/tickets-passes/
Sealife Michigan Sensory Friendly Morning
Dec. 1, 9:00 am- 10: am 4316 Baldwin Road, Auburn Hills, MI 48326
During Sensory Friendly Mornings, we’ll reduce the lighting, turn off music & disable distracting stimuli for an hour before we open to the general public. This event is perfect for our friends on the autism spectrum.
The aquarium will open to the general public with normal lighting, sound, etc. at 10 am, but you’re welcome to stay as long as you like and do not have to leave when the event ends at 10 am. Tickets are limited and must be purchased online in advance for this special event. Please check https://www. visitsealife.com/michigan/ what-s-inside/events/ sensory-friendly-mornings/
DNR Outdoor Adventure Center Sensory Friendly Play
Dec. 1, 10:00 am- 12:00 pm
Outdoor Adventure Center, Globe Trading Company Building, 1801 Atwater St, Detroit, MI
The DNR Outdoor Adventure Center welcomes friends and families with sensory processing differences to our sensory-friendly building hours! Enjoy the opportunity to explore and experience the OAC with building sounds and ambient noises at a lower volume. During your visit, there will be a quiet room with sensory materials available to use, and a limited building capacity. At noon, the building will open to the public, with volumes returning to standard operating levels. All staff are KultureCitycertified to ensure the best possible experience.
Various Activities scheduled Dec.1 - Dec. 31
Check website https:// www.michigan.gov/oac
Fascination Factory
Sensory Friendly Play
Dec. 3, 2:30 pm- 5:30 pm
2295 E Lincoln St; Suite 150, Birmingham, MI
What to expect in our new sensory sensitive hours: Back door locked for safety
Please join us for our monthly “virtual” music therapy event!! Please RSVP by February 25 to Cathy Blatnik at blatsie63@ yahoo.com with your name, age, contact phone number and e-mail address
Autistic Play Place Teens Night
Dec. 4, 11, 18, 25, 4:00 pm - 6:00 pm
42301 Mound Rd, Sterling Heights, MI 48314
Play-Place’s multi-purpose programming of art, music exercise and recreation is specifically designed to offer these individuals simple and fun experiences with life-changing impact. Additionally, we strive to integrate community as a part of the inclusion piece via participation from area high school programs (NHS, sports teams, DECA clubs) including togetherness, respect for diversity, fun, behavioral supports and peer interaction and full access to age appropriate activities and learning. (586) 254-6533 Email info@autisticplayplace.org
Hosted by RARA Recreation. Enjoy a movie with your friends at the theater one Friday a month. You will pay for your own ticket and concessions. Plans are based on the current theater schedule. You must pre-register so that enough assistance is provided and space reserved. Ages 14+. Fee is $6 for residents & non-residents. Register via RARARecreation.org.
Sensory-Friendly
Santa at 1001
Dec. 21, 5:00 pm
1001 Woodward Avenue Detroit, MI 48226
UMAISE Holidays is excited to offer sensoryfriendly Santa visits. Join the team as we walk along the trail to explore Santa’s village. The University of Michigan Adaptive and Inclusive Sports Experience (UMAISE) aims to enhance the physical, social and emotional development for people with disabilities by providing quality, local and low-cost sports and recreation opportunities throughout the lifespan. To reserve a spot https:// www.eventbrite.com/e/ sensory-friendlysanta-at-1001-tickets1048899325117?aff =ebdssbdestsearch
MJR Digital Cinema
Sensory-Friendly Film
Check the website for movie times
100 East Maple Road, Troy, MI, 48083, United States
Come Join Scout Troop 1197! First All Inclusive Troop! 4920 Groveland Rd, Ortonville, MI 48462
The ONLY troop of its kind in MI, troop 1197 is being held right now at O.A.T.S. (Offering Alternative Therapy with Smiles) in Ortonville for those with special needs ages 11 and up. The troop, designed with experienced scout leaders, will include typical scouting activities including camping and outdoor skills. For more information, email walkonoats@gmail.com
Jingle Bell Ball Sponsored by Oakland County Parks
Adaptive Needs Events Dec. 4, 6:00 pm- 8:00 pm Waterford Oaks Activity Center, 2800 Watkins Lake Rd, Waterford, MI 48328)
Seasonal, social dances and events hosted by Oakland County Parks and Recreation. $12 per person / $6 per caregiver. Registration opens six weeks prior to each event date. Preregistration required. Call 248-221-8040 for questions and to register.
Is there a local event for the special needs community you would like us to promote in an upcoming issue? Email us at SpecialNeedsIndy@n2pub.com.
any cherished occasion. Each photo tells a unique story of joy and achievement. It’s a chance to share these meaningful experiences with others who can appreciate and celebrate each journey.
We are also celebrating November, December and January Awareness Months, inviting you to share a photo that captures a special moment related to an Awareness Month. Customize your caption to highlight the moment’s meaning to your family.
PERSONALIZED ABA THERAPY FROM THE BEST THERAPISTS
Recreational-based applied behavior analysis (ABA) is an innovative approach that combines the principles of behavior analysis with recreational activities to promote positive behavior change in individuals. This approach focuses on using fun and engaging activities to teach new skills and behaviors while also reducing challenging behaviors. We believe in naturalistic therapy that is child-centered, individualized, play-based and with the best therapists.
You!Milestones and Favorite Memories
F r e e m o n t h l y p u b l i c a t i o n t o c e l e b r a t e , c o n n e c t ,
s u p p o r t & i m p a c t t h e s p e c i a l n e e d s c o m m u n i t y !
- S t o r i e s f r o m f a m i l i e s a n d i n d i v i d u a l s w i t h s p e c i a l n e e d s , g i v i n g h o p e t o o t h e r s
- H i g h l i g h t s o f s u p p o r t i v e o r g a n i z a t i o n s .
- E v e n t s w h e r e f a m i l i e s c a n c o n n e c t , b u i l d r e l a t i o n s h i p s & c o m m u n i t y
- T i p s , u p c o m i n g e v e n t s , v a l u a b l e i n f o r m a t i o n & s o m u c h m o r e !
