Special Needs Living Indy January 2024 Digital Issue by Uniquely You

JANUARY 2024

meet the Meckel family PHOTO BY 21 VINES PHOTOGRAPHY

Now hiring BCBA, RBTs, and Montessori teachers, send resumes to

HR@montessoriaba.com

January 2024

Every 3RD FRIDAY OF THE MONTH ALL PROFITS go to chosen charity of the month.

Jump. Climb. Get Active. Sensory Hours

Thursday's 6:00 p.m.- 8:00 p.m. Special accommodations taken during sensory hours. WAIVER FORM

PLEASE FILL OUT BEFORE JUMPING We love to throw Birthday Parties! TODDLER PLAY AREA • TRAMPOLINE PARK • ARCADE WARPED WALL • ZIP LINE • AND MORE...

10080 E 121st St Suite 182 • Fishers, Indiana 46037 317-572-2999 • www.adrenalinefishers.com Special Needs Living Indy

ISSUE PREVIEW

Self Advocates: Meet Alex Deron

Featured Family: Meet The Meckel Family

• Pages 36-39 Featured Family: Meet The Meckel Family • Pages 24-25 Pastor’s Corner: “The Unseen Strength: Overcoming Disabilities Among the Apostles of Jesus Christ” • Page 29 Milestones and Favorite Memories in 2023 • Pages 50-52 Outside the Box is Inside the Fishers Community • Pages 26-27 Sponsor Spotlight: Dynamic Music Service, INC: Harmonizing Lives Through Music Therapy • Pages 32-33 Nonprofit Spotlight: Hancock County Poss-ABILITIES, Inc. • Page 44 Single Mamas Seen: Helpful Techniques for Dealing With Stress • Page 17 Are You Eligible? • Page 43 Sensory Blurb! • Pages 34-35 Self Advocates: Meet Alex Deron • Page 14 What’s Happening at Janus, Inc.! Meet Jeff Qualizza • Pages 6-7 Community Resources • Page 53 Save The Date: Special Needs Living New Years Bash • Pages 18-20 Local Events

OWNER/ADVERTISING INQUIRIES

Outside the Box is Inside the Fishers Community

Jamie McCabe 248-882-8448 Jamie.McCabe@n2co.com Single Mamas Seen: Helpful Techniques for Dealing With Stress

Scan the QR Code to Subscribe or Nominate:

Scan to share a story or check out https:// linktr.ee/community.stories

Sponsor Spotlight

Nonprofit Spotlight

What’s Happening at Janus, Inc.! Meet Jeff Qualizza 4

January 2024

Looking to advertise or connect more? Scan to schedule an appointment with Special Needs Living Indy.

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Midwest Academy is an intentional educational community serving students in grades 3-12 with ADD/ADHD, language-based learning diﬀerences, high functioning autism, and processing challenges.

The school is designed to develop academic achievement, self-acceptance, and personal accountability. We oﬀer our students a small, engaging educational setting, an inspiring progressive curriculum, and a culture focused on the development of the whole child.

Schedule a tour today. 317-843-9500 www.mymwa.org | 1420 Chase Ct. Carmel, IN | admissions@mymwa.org Special Needs Living Indy

I M P ORTA N T

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NU MBERS

317-977-2375 317-676-4222 800-609-8448 877-241-8144 800-545-7763 800-545-7763

800-622-4968 888-673-0002 800-403-0864 317-232-7800 317-925-7617 877-511-1144 317-466-1000

Arc of Indiana www.arcind.org Autism Community Connection www.autismcc-in.org Autism Society of Indiana Blind and Visually Impaired Services (BVIS) Bureau of Developmental Disabilities Services (BDDS) Bureau of Rehabilitation Services (BRS) Deaf and Hard of Hearing Services (DHHS) DHHSHelp@fssa/in.gov Disability Determination Bureau Division of Aging (IDA) Division of Family Resources (DFR) Division of Mental Health and Addiction Down Syndrome Indiana Early Childhood and Out of School Learning (OECOSL) Easterseals Crossroads https://eastersealscrossroads.org

Scan to view the past issues of Special Needs Living Indy

911 800-545-7763 574-234-7101 317-232-0570 844-323-4636 317-233-4454 317-232-7770 812-855-6508 317-233-1325 844-446-7452 855-641-8382 800-332-4433 800-457-4584 317-232-7770 988 800-772-1213 800-772-1213 877-851-4106 317-871-4032 800-545-7763

Emergency First Steps INSOURCE – www.insource.org Indiana Department of Education: Office of Special Education – www.doe.in.gov/specialed Indiana Family to Family - www.inf2f.org Indiana Family and Social Services Administration (FSSA) – www.in.gov/fssa/index.htm Indiana Governor’s Council for People with Disabilities (GPCPD) Indiana Resource Center for Autism Indiana State Department of Health Indiana Statewide Independent Living Council (INSILC) Indiana Works INSOURCE – http://insource.org/ Medicaid Disability Medicaid Waivers National Alliance on Mental Illness Social Security Administration (SSA) Social Security Disability Insurance (SSDI) Special Education Questions United Cerebral Palsy Association of Greater Indiana Vocational Rehabilitation Services (VR)

DISCLAIMER: Any articles included in this publication and/or opinions expressed therein do not necessarily reflect the views of The N2 Company d/b/a N2 Publishing but remain solely those of the author(s). The paid advertisements contained within the Special Needs Living magazine are not endorsed or recommended by The N2 Company or the publisher. Therefore, neither The N2 Company nor the publisher may be held liable or responsible for business practices of these companies. NOTE: When community events take place, photographers may be present to take photos for that event and they may be used in this publication.

Neurofeedback is a non-drug, non-invasive solution to symptoms related to brainwave dysregulation. It's natural and offers a fix to the problem, not just a bandage that masks the symptoms.

Indy Neurofeedback is Changing Lives! Do you or someone you love suffer from ADHD, Anxiety or Emotional Dysregulation? Let Us Help You Explore Your Options.

"We followed the same path most of the other autism parents do with GFCF, DAN Dr., supplements, HBOT. What really made a difference in our son’s attention span, executive processing skills, and anger management was neurofeedback through INDY Neurofeedback." ~Maria S. (parent)

Schedule a consultation today!

210 E 91st Street, Suite C, Indianapolis, IN 46240 • (317) 888-8500 • www.indyneurofeedback.com 6

January 2024

Healing Hands Personal Services is here for you,

wherever life takes you.

• Online and in-home onboarding for your convenience • Dedicated parent attendant care staff to answer your questions • We are here to support you because even caregivers need care sometimes.

Healing Hands Provides: • Parent Attendant Care • Senior Attendant Care • Structured Family Caregiving

Parent Caregivers and Nurses Receive: • Competitive pay • Health, Dental and Vision Insurance • Paid vacation time (cash out option) • Community Resource Support

317.788.0777 | healinghandsindiana.com Special Needs Living Indy

This section is here to give our readers easier access when searching for a trusted neighborhood partner to use. Get to know the businesses that make this magazine possible. Please support them in return and thank them if you get the chance! ABA & COMPREHENSIVE SERVICES K1ds Count Therapy (317) 520-4748 Mindful and Modern ABA Therapies (317) 827-7777 ABA SERVICES Grateful Care ABA (317) 572-5315 gratefulcareaba.com/ Link to Learn (317) 863-8388 Piece by Piece Autism Center (765) 481-2261 The Umbrella Center (463) 701-0909 ABA SERVICES - IN HOME B Above Services (317) 773-0500 www.baboveservices.org Blue Balloon ABA (317) 650-1109 www.blueballoonaba.com ABA/COMPREHENSIVE SERVICES The Hope Source (317) 578-0410

BEHAVIOR MANAGEMENT Supportive Behavior Services (765) 337-1895 www.supportivebehaviorservices.com CASE MANAGEMENT Connections Case Management (317) 440-0637 IPMG - Indiana Professional Management Group (866) 672-4764 CLEANING: RESIDENTIAL & COMMERCIAL The Dust Devils (317) 709-6120 COMMUNITY SUPPORT Achieve Community Services (317) 918-0337 acssupports.com/ Carters Play Place (317) 836-5510 cartersplayplace.com Indiana ACT for Families (317) 536-6900

ADOPTION Indiana Adoption Program (855) 677-5437 www.indianaadoptionprogram.org/

LEL Home Services (317) 387-1443 lelhomeservices.com

ADULT INDEPENDENCE Janus Developmental Services, Inc. (317) 773-8781 www.janus-inc.org/

DAY / BEHAVIORAL SERVICES Developmental Disabilities Systems INC. - DDSI (317) 477-8240

ADVOCACY/EVALUATIONS PEAS for Kids (920) 980-1172

FINANCIAL ENABLE Special Needs Planning, LLC (765) 585-1050 enablesnp.com

ATTORNEY Hostetter & Associates (317) 852-2422

ATTORNEY-WILLS/TRUSTS/ ESTATE PLANNING Law Office of Elizabeth A. Homes LLC (317) 660-5004

January 2024

WestPoint Financial Group Gordon Homes (317) 567-2005

HOME CARE Amiable Home Care Inc. (317) 802-1746

NEUROFEEDBACK THERAPY Indy Neurofeedback (317) 888-8500

HOME CARE & TRANSPORTATION ABC Community Services LLC (317) 516-1178 www.abccommunityservices.com

PEDIATRIC HOME CARE Guardian Care (317) 360-0359 myguardian.care/

HOME HEALTH CARE Comfort Care (317) 552-2039

REALTOR F.C. Tucker Nicole Lyon (317) 501-0639

HOME HEALTH SERVICES Tendercare Home Health Services (317) 251-0700 www.tchhs.net/ HOME MODIFICATIONS / SPECIALTY EQUIPMENT Specialized Home Care Services (888) 506-4182 www.specialized4u.com/ ICE CREAM Howdy Homemade Ice Cream (317) 397-0008 www.howdyindy.com INSURANCE State Farm John Cole (317) 430-1958 Thomas Insurance Agency (756) 561-5138

SCHOOL Dynamic Minds Academy (317) 578-0410 Midwest Academy (317) 843-9500 SCHOOL - SPECIAL NEEDS The Fortune Academy (317) 377-0544 SENSORY SPACES Corporate Interior Solutions (317) 691-4156 SUPPORT SERVICES Easterseals Crossroads (317) 466-1000 Joseph Maley Foundation (317) 432-6657 www.josephmaley.org

MEDICAL EQUIPMENT & PHARMACY George’s Pharmacy & Medical Equipment (855) 600-6251 www.georgespharmacy.com

The ALTRUIST Group, LLC (317) 547-3041 x1005

MORTGAGE CrossCountry Mortgage (317) 666-4679

THERAPY & TESTING SERVICES The Brain Center (317) 748-0034

MUSIC THERAPY Dynamic Music Therapy (317) 829-6654

My Quillo (317) 626-4387 myquillo.com/

Special Needs Living Indy

January 2024

Special Needs Living Indy

PEAS for Kids PEAS for Kids specializes in educational consultation, advocacy, and customized assessment plans for children (grades PK-12+). Assessment plans address emotional concerns and learning disabilities such as Dyslexia, as well as characteristics of Autism Spectrum Disorder and Attention Deficit Hyperactivity Disorder (ADHD). PEAS for Kids strives to utilize the results of our evaluations to provide recommendations for, and work with parents in advocating for their child's educational needs within the school setting.

Adult Day Habilitation • Behavior Services Participant Assistance & Care MAKE CHOICES • GAIN SKILLS • CUSTOM EXPERIENCES Give us a call today to learn more about being involved.

ddsi-in.com • info@ddsi-in.com • 317-477-8240

5999 W Memory Lane Greenfield, IN 46140

The Brain Center Comprehensive outpatient neuropsychological and psychological assessment services for children, adolescent, adult, and geriatric patients in whom impairments of cognitive or neuropsychiatric functioning are evident or suspected.

Psychotherapy for children, adolescents and adults. Neuropsychological Testing Forensic/Legal Evaluations Psychotherapy & Caregiver Consults CogMed Training Animal-Assisted Therapy

317-748-0034 braincenteratgeist.com 12

January 2024

Psycho-educational Evaluations and Advocacy Solutions (PEAS) for Kids

Allison M Charette, Ed.S. Nationally Certified School Psychologist Founder, PEAS for Kids (920) 980-1172 • www.peas4kids.com allison@peas4kids.com

Meet the Special Needs Living Indy Team

Jamie McCabe — Publisher and Area Director

Tasha Cleaver — SNL Account Executive

Christina McGairk — Editor and Writer

Angela Arlington — Community Engagement Coordinator, Writer and Contributor

Maria Smietana — Editor-in-Chief

Dr. Darolyn “Lyn” Jones — Content Coordinator and Writer

Heather Gregg — Photographer, 21 Vines Photography

Christie and Nathan Buonanno — Buonanno Photography

Kendal Ford — Kendal Nicole Photography

Paul Hathcoat — Writer and Contributor

Christia Woodford — Publishing Assistant and Local Events

Tanya Sood — Writer and Contributor

DeAndra Yates — Writer

Dorie Zipperle — Writer and Contributor

Sheila Wolfe — Writer and Contributor

Jane Gailey — Contributor

Aaron Olson — Writer

Isaac Roman — Writer and Photographer

Matt Knight — Writer

Angelica N. Gray, MA, BCBA, LBA — Writer

Charles Spray MS, LMHCWriter and Contributor

Kate Miller- Writer and Contributor

Special Needs Living Indy

WHAT’S HAPPENING AT JANUS, INC.!

MEET JEFF QUALIZZA Jeff Qualizza started working at the Capabilities Café in February of 2023. The Capabilities Café is operated by Janus Developmental Services, Inc. and is located in the Hamilton County Judicial Center. But you might even recognize Jeff from 44 years ago, when he was the model for Kraft Macaroni & Cheese Dinners back in 1979. He was the little boy in the yellow raincoat. So even at a young age he was doing amazing things. Jeff is a 50-year-old man with autism. He and his parents, Michael and Linda, moved to Carmel in October of 2022 from northwest Indiana so they could be closer to his sister Jodi, who lives in Fishers with her husband and children. Jodi will serve as Jeff’s legal guardian when their parents are no longer here to look after him. As mom and dad entered their 70s they felt that it was time to downsize and prepare for the next chapter in Jeff’s life. The move to Hamilton County was daunting in that it required three moves, one to a temporary home while awaiting the completion of their permanent home. Then there was Jeff’s move to North End Apartments when Jeff “won” one of the

Jeff loves his new job at Capabilities Café and his new apartment.

Jeff Qualizza

Jeff as a child advertising for Kraft Macaroni and Cheese

40 slots in the new complex which were reserved for adults with disabilities. The Village of Merici was the sponsoring agency for this new apartment complex. Jeff loves his new job at Capabilities Café and his new apartment. There were some growing pains and Michael and Linda had some adjusting to do also. But Jeff is very happy that his parents made the move. He enjoys the welcoming community and friendly people where he works and lives. Michael and Linda truly feel that their move was “meant to be” and look to the future with confidence and optimism. They are truly grateful to the folks at Janus and Village of Merici for their dedication and service. 14

January 2024

Special Needs Living Indy

HERE TO HELP YOUR FAMILY THRIVE & SURVIVE THROUGH YOUR NEXT MOVE.

January 2024

Are You Eligible?

elaine Thomas and her husband, Brian, own Thomas Insurance Agency. They enjoy helping those who qualify for Medicare and Medicaid, or who are already on Medicare and Medicaid, to find the plan that best fits their needs and receive extra benefits. Many people have told Delaine “I don’t qualify for Medicare because I am not 65 yet.” “That simply is not true,” Delaine said. “If you’ve been on social security disability income (SSDI) for two years, then you’re eligible for Medicare, regardless of age. These additional benefits are federally funded, not state-funded. And, if you’re fully qualified at the highest level, then you can get a debit card that has money for groceries and over-the-counter items. Some plans offer utility benefits as well. Other benefits include dental, hearing, and vision services and some of the plans cover a gym membership and a personal emergency response system at no cost.” “Recently I was able to help a young adult who didn’t realize that he was eligible for benefits with Medicare,” Delaine shared. “This young man’s aunt met with me to discuss his eligibility and the plans that would be best for him. They were super excited. Even though he is disabled he can live by himself in his own apartment, but his utility bill can be quite expensive in the winter. With his new plan, he will receive money to put toward his utility bill, in addition to money for healthy groceries and over-the-counter products.” Delaine loves working with anyone to figure out if they’re qualified for Medicare and Medicaid, and especially added benefits like hearing, vision, dental, and more. “There are so many people out there that don’t realize all the benefits that they could be eligible for. These added benefits were designed for you, and I want to get the word out, informing people so that they’re aware of their options.” Delaine has to complete annual training that is required by the federal government to ensure that she is in compliance with the latest regulations and policies. To help you find the best Medicare Advantage plan for your specific needs Delaine can check to make sure your doctors and prescription medications are covered and determine your needs with regard to transportation, utility payments, over-the-counter products, and healthy grocery purchases. “It is always my goal to take care of your needs and to make sure that you fully understand the plan that you have,” she noted.

“Being able to help others is the most fulfilling part of my job,” Delaine said. “Many people, especially those on Medicare and Medicaid, don’t realize that there are plans available to them, but when they find that out, they are so grateful for the help. They know that they can reach out to me anytime and I will be there to help walk them through their questions.” “For me,” she added, “it’s all about building relationships with each person so that they know I will listen to their concerns. Even when I can’t help, I can point them in the right direction to get the help they need. If I can do that, then I have had a good day.” If you are wondering if you or someone that you love is eligible for additional benefits, feel free to contact Delaine at delaineth@hotmail.com.

TIA

If you have these cards you might be eligible for extra benefits.

CALL ME TODAY.

Delaine Thomas 812-318-5197 Special Needs Living Indy

Local Events BY CHRISTIA WOODFORD

Note: Don’t forget to apply for the Access Pass! The Access Pass Program allows families that meet the specific requirements listed below to visit The Children’s Museum of Indianapolis and all participating locations for $2 per family member per visit for up to two adults and all dependent youths living in the household. You qualify if you receive: • Hoosier Healthwise Insurance (Indiana’s health care program for low-income families, pregnant women and children) • SNAP (Supplemental Nutrition Assistance Program) • TANF (Temporary Assistance for Needy Families) • Apply here: https/www. childrensmuseum.org/visit/ hours/access-pass. MUSEUMS The Children’s Museum of Indianapolis First Thursday Nights Jan. 4, 4:00 pm- 8:00 pm The first Thursday of every month, 4:00 PM-8:00 PM. Go back in time to the Age of the Dinosaurs and explore the basics of science through fun, hands-on activities in Dinosaur Train: The Traveling Exhibition Travel to Greece without leaving Indiana in Take Me There®: Greece Uncover ancient artifacts in National Geographic Treasures of the Earth 18

January 2024

https/www.childrensmuseum.org/visit/ calendar/event/273/2023-04-06 WinterFaire Nov. 18- Feb. 11, 2024 WinterFaire is a magical indoor world featuring a festive, carnivallike atmosphere, fun-filled games, loveable critters, and hands-on activities. Play, laugh, and make lifelong memories together in this one-ofa-kind indoor winter experience. Zoom down WinterSlide The animals of WinterFaire have used the frozen fountain’s magical water to turn the beloved slide in the Sunburst Atrium into the icy WinterSlide! The “snow” on either side will light up as you race toward the bottom. How fast will you go? Various Events Jan. 1- Jan. 31, Opens at 10 AM 3000 N. Meridian St., Indianapolis, IN 46208, 317-334-4000 https/www.childrensmuseum.org Conner Prairie — Indiana’s Living History Museum Dr. Martin Luther King Jr. Day Jan. 16, All Day Event Martin Luther King Jr. believed in love over violence, hope over fear, and unity over divisiveness. His legacy inspires each space, activity, and all content shared with our guests.

Teen Room: This space is devoted to all teens! The environment will include soft spaces to relax and think, sympathetic lighting, snacks, and music. Learn about symbols of activism and be encouraged to create symbols of your own using art materials and iPads. Blood Drive: Hosted by Versiti, an opportunity to give back in a big way. Sign up today! Identity Invitations: Connecting our own identities to empathy for the identities of others, mirrors and loose parts will be provided for you to create a transient art representation of yourself. This is Problematic! Podcast: You’re invited to record and edit audio of your own with our podcast hosts, Hannah Murphy and Easton Phillips. Listen to the podcast now! Collaborative art: Join us in visually demonstrating the connectedness of the qualities of love and also of the people we share our community with. Charity table: Learn more about the different charities in our communities. Discovery Station: Displaying themed texts of love and belonging. Downstairs: Spark!Lab will be open and it will feature panels of

innovative thinkers to encourage your own inventiveness Anything Can Happen Art: Circlethemed play invitations invite you to learn more about connection for our youngest creators. BE LOVE Pledge: As you leave we welcome you to sign the “Be Love Pledge,” located in the Welcome Center. Café in the Overlook room: 10 a.m. - 3 p.m. ADDITIONAL PROGRAMMING Drumming, dancing and singing: Two groups of performers throughout the day that spread love and be love. Films: In Lilly Theater, we will have a video loop featuring the film Courage — telling the stories of courageous members of our community over time, as well as two videos about the Birmingham Children’s March. You will have the opportunity to share how courage shows up in your own life. Across from the theater, view last year’s collaborative art piece created by artist Israel Solomon. Vocalist: Enjoy the music of Allison Victoria whose message is to love yourself and others. Child Care Answers: Visit their table to learn about how they are serving their communities by connecting families to resources for food, housing, childcare, and caregiver education. https/www.connerprairie.org/ dr-martin-luther-king-jr-day/ Sensory-Friendly Hours The second Sunday of every month, from 10 AM to noon, are sensoryfriendly hours at Conner Prairie! Enjoy a calm environment Dec. 17Check-in with Guest Relations, stating that you are here for sensory-friendly hours. You will get free admission and may stay as long as you wish.

Jan. 1- Jan. 31, 10:00 am- 10:00 pm 13400 Allisonville Road, Fishers, IN 46038 Phone: 317-776-6000 or 800-966-1836 https/www. connerprairie.org/events/list SPORTS Indy Fuel Jan. 10, 19, 20, 226, 27 Indiana Farmers Coliseum, 1202 E 38th St, Indianapolis, IN 46205 https/www.indyfuelhockey.com/ Indianapolis Colts Jan. 7, Houston Texans Lucas Oil Stadium, 500 S Capitol Ave, Indianapolis, IN 46225 https/ www.colts.com/schedule/ Indiana Pacers Jan. 3, 5, 6, 10, 23, 25, 26, 28 Gainbridge Field House, 125 South Pennsylvania St. Indianapolis, IN https/www.nba.com/pacers/ FAMILY FUN Special Needs Living-Indianapolis & Surrounding Areas New Year’s Bash! January 20, 2:00 p.m. to 5:00 p.m. DDSi and Adaggios Banquet Hall, 5999 W. Memory Lane, Greenfield, IN 46140 Come celebrate the New Year with many special needs families at the New Year’s Bash! This will be for adults and kids with special needs, along with the supporters of Special Needs Living-Indianapolis & Surrounding Areas. There will be activities and games for kids, and you are welcome to bring your caregiver to the event to help. Parents will be able to enjoy an evening of fun and entertainment. We will have live bands, thanks to Rock Garage and Infinity, dancing, appetizers, beverages, games and more!

scan or click link to register: https://www.eventbrite.com/ e/771712110697?aff=oddtdtcreator

Indianapolis Zoo Various events scheduled daily Jan. 1- Jan. 31, 9:00 am- 4:00 pm 1200 West Washington St. Indianapolis, IN 46222 https/www.indianapoliszoo.com/ The Studio Movie Grill 3535 W. 86th St., Indianapolis, IN 46268 317-315-8113 Sensory-friendly screenings of movies! Check the website for movies and times. https/www.studiomoviegrill.com/ movie/special-needs-screenings THE ARTS Beef and Boards Menopause: The Musical Jan. 5- Feb. 4 9301 Michigan Road, Indianapolis, IN 46268 317-872-9664 https/www.beefandboards. com/Online/default.asp Jubilate Choir Butler University, Lilly Hall, Room 133 Wednesdays, 6:45-7:30 PM The Jubilate Choir is for singers with special needs in grades 3-9. Singers with varying abilities meet each week to grow musically. This tuition-free choir focuses on proper singing techniques, music theory and sight-reading, partsinging, and social skills involved in being a member of a musical ensemble. Though Jubilate has, at its core, the same goals as other choirs in the Indianapolis Children’s Choir (ICC), singers in Jubilate engage in additional activities like visual and tactile experiences that are catered specifically to the current members of the choir. Director: Lauren Southard For more information, contact Lauren Southard at 317-940-8065 or lsouthar@icchoir. org. https/icchoir.org/special-needs/

Various events

Special Needs Living Indy

Gigi’s Playhouse Various classes during the week. 5909 E. 86th St., Indianapolis, IN 46250 317-288-8235 indy@gigisplayhouse.org https/gigisplayhouse.org/ indianapolis/sfcalendar/ EVENTS Ask the Advocate Free Live Zoom Events Sponsored by IEP Services, LLC. Jan. 8 from 12:00 pm-!:30 pm The second evening of each month Do you need help getting your child with special needs the services they NEED and DESERVE at school? Each session will begin with a short informative presentation followed by an open Q & A session where parents can get answers about their child’s circumstance and their right to a Free Appropriate Public Education. Please email sheilawolf@sbcglobal.net for more information. Zoom link: https/ us06web.zoom.us/meeting/register/ tZwvceCsrTIiGdzwNGqnTmJ_ q7Yf6af985qV#/registration Ask The Arc Webinar Jan. 11, 6:00 pm- 7:00 pm

Our Ask The Arc webinar series will provide information and discussion on timely topics relevant to people with intellectual and developmental disabilities, their families, and their support systems. Webinars will take place on the 2nd Thursday of the month at 6:00 p.m. EST. Past webinars will be recorded and posted to view on your own schedule in The Arc of Indiana Academy and on our YouTube channel. Registration is for the complete webinar series. You can pick and choose which ones you want to attend without having to register each time. https/us06web.zoom.us/webinar/ register/WN_hTnwxka_S-MknIpiQoNrA#/registration SibShops- Indianapolis Jan. 25, 5:00 pm- 8:30 pm 5377 E Washington St, Indianapolis, Indiana 46219 SIBSHOPS ™ is a nationally acclaimed program that provides peer support within a recreational environment for children who have a sibling with special needs. Sibshops is a fun-filled event geared toward the specific needs of siblings with a brother/sister with special health and developmental needs.

1. Siblings have the opportunity to meet other siblings in a relaxed, recreational setting 2. There is an opportunity to discuss common joys and concerns with others 3. Siblings have the opportunity to learn about disabilities and the implications for future growth and challenges AGES: 6 to 13y.o. and 14 to 18y.o. INCLUDED: Arrive at 5:30 pm for light dinner followed by programming SIBSHOP LEADERS: Jan Schreibman, MM, MT-BC, CCLS; Pam Thompson, CTRS; Luke Sherar, MT-BC; Rachel Williams, MT-BC; Crystal Black, MT-BC, Becky Sorley, MT-BC One Sibling $15 Two Siblings $20 More than two Siblings $25with special Registration Information: www. creativepathwaysindy.org, janschreibman@gmail.com 317-748-4802

Is there a local event for the special needs community you would like us to promote in an upcoming issue? Email us at SpecialNeedsIndy@n2pub.com.

January 2024

Behavior Consultant Spotlight at Supportive Behavior Services https://www.youtube.com/@indianabehaviorassociation

Heather Fisher began her career in 2012 working with young teens with dual diagnosis and realizing her passion for the field. She then began her master’s in applied behavior analysis in 2014 while working as a RBT at an ABA clinic and graduated in 2017. She then became a BCBA while working as a behavior consultant and has grown in the field since. Heather is currently in her PhD program with dissertation approval to start research in Spring 2024. Being a behavior consultant has helped me see different perspectives and how we are not “one size fits all” with the way we learn, grow, and acquire skills. “In this role, I have learned to try new directions when solving problems and being present with the life we’ve been given. I am a mom of four and actively involved in my community. I play adult coed softball 8 months of the year, coach 8u & 10u softball, I am the softball director at our local middle school recreation program, active 4-h family, president of our nonprofit fundraising club for dance, basketball coach during winter, and cofounder of a nonprofit indoor recreation softball/baseball academy. My mission in life is to find new outlets for our younger generation and guide them to an active lifestyle.”

Mike Reed came to the behavior field later in life. Prior, he was an intelligence analyst and consultant working as a government subcontractor. He had pursued different career tracks before that, but nothing seemed to be quite the right fit. He took a job working with adolescents that exhibited negative behaviors at school and found it to be highly satisfying. Lacking formal training in the field, Mike pursued a master's degree in the field of applied behavior analysis (ABA) and was able to obtain licensure as a board certified behavior analyst (BCBA). "I love what I do. I can't believe I get to do what I do sometimes. I work with families and staff from different organizations and build these relationships. I get to watch people grow and overcome their challenges. The people I work with become like family over time. I get to make a positive impact in their lives, and they look forward to seeing me each week, most of them! Some of them don't appreciate me pushing them out of their comfort zones, but they know I'm there for the right reasons. It can be challenging and frustrating too, as anyone in the field knows. But what isn't challenging and frustrating sometimes?"

Zachary Walter is the owner of ZKW Behavioral Health. He obtained his undergrad degree at Butler University before obtaining his masters in clinical psychology from Ball State University. Zachary then worked primarily in hospital settings providing services as a psychometrist and psychiatric intake coordinator. During this time, he became fully ingrained in working to serve others through behavioral health. Zachary started ZKW Behavioral Health in 2022 to provide supports for a wide range of individuals who desire assistance in living their best lives. He uses many different strategies to aid with behavioral support including community integration, positive reinforcement, cognitive reframing, and teaching life skills. "What I love most about being a behavior consultant is the impact I get to make in so many peoples’ lives. I love helping others learn a variety of life skills and increase their overall quality of life. “In his free time, Zachary enjoys spending time with his wife, daughter, and cavapoo puppy. He also enjoys exercise, cheering on Cincinnati sports teams, and collecting vintage Pokémon cards.

Laura Reel graduated from Indiana State University with a degree in early education and a minor in psychology. She has been married to her husband for 20 years and they have two children together. Her oldest son was diagnosed with Autism at 12 months and as he became school aged, she realized how much she needed help with guiding Conner in the right direction. Laura then decided to return to school for her Masters in Behavior (ABA track) to be able to help her son live a successful life. Soon after she learned that helping others was a lifelong calling and has never looked back. She has been working as a behavior consultant under the Medicaid waiver since 2016. Laura is passionate about the families she works with and dedicated to helping support the needs of each family by providing resources, tools, and love that cater to them individually. Outside of her work life, Laura enjoys traveling and spending time with her family and friends on her free time.

SBSMain2020@gmail.com

www.IndianaBehaviorAssociation.com

www.SupportiveBehaviorServices.com Special Needs Living Indy

January 2024

ASK THE ADVOCATE

Free Live Zoom Events Sponsored by IEP Services, LLC WHEN: January 8, from 12:00 pm to 1:30 pm Do you need help getting your child with special needs the services they NEED and DESERVE at school? Each session will begin with a short informative presentation followed by an open Q & A session where parents can get answers about their child’s circumstance and their right to a free appropriate public education. Please email sheilawolf@sbcglobal.net for more information.

Sheila A. Wolfe; Special Education Consultant

Welcome! You are invited to join a meeting: Ask the Advocate. After registering, you will receive a confirmation email about joining the meeting. SCAN ME

Special Needs Living Indy

PASTOR’S CORNER

The Unseen Strength: OVERCOMING DISABILITIES AMONG THE APOSTLES OF JESUS CHRIST BY PAUL HATHCOAT

In the annals of history, the apostles of Jesus Christ have been celebrated as extraordinary individuals who played pivotal roles in spreading the teachings of Christianity. What is often overlooked, however, are the unique challenges and disabilities that some of these apostles faced. It is a testament to the transformative power of faith and compassion that these men, despite their struggles, were able to rise above their limitations with the guidance and support of Jesus himself. Let’s look at these disciples and how they managed to overcome their own shortcomings and deficits to serve Jesus and the Kingdom, from a Pastor’s perspective. 1. Matthew: The Tax Collector Turned Disciple

Matthew, also known as Levi, was a tax collector before he heeded the call of Jesus. Often ostracized for his profession, Matthew faced the

impairment of societal prejudice. In the eyes of his contemporaries, he was tainted by association with the oppressive Roman regime. However, Jesus saw beyond the societal norms and recognized the potential for redemption within Matthew. By choosing him as an apostle, Jesus demonstrated the transformative power of acceptance and the ability to see value beyond societal labels. 2. Peter: The Impulsive Leader

Peter, a fisherman by trade, was known for his impulsive nature. His disability, if one could call it that, was his tendency to act without thinking. This impulsiveness led to mistakes, such as denying Jesus three times during his trial. Despite this flaw, Jesus recognized in Peter a leader with untapped potential. Jesus worked with Peter, refining his impulsiveness into boldness and

Do you have a thought, idea or information that you would like to see in this section in an upcoming issue? Email Paul Hathcoat at phathcoat@wrcc.org.

January 2024

zeal, traits that would later become instrumental in the establishment of the early Christian Church. 3. Paul: From Persecutor to Preacher

While not one of the original twelve apostles, Paul’s transformation from a persecutor of Christians to a fervent preacher is a remarkable tale. Paul faced the debilitation of spiritual blindness, persecuting those who followed the teachings of Jesus. Yet, in a dramatic turn of events on the road to Damascus, Jesus opened his eyes both physically and spiritually. This transformation exemplifies the power of divine intervention to overcome deep-seated prejudice and redirect one’s life towards a greater purpose. 4. Thomas: The Skeptic’s Journey to Faith

Thomas, often dubbed “Doubting Thomas,” struggled with a form

of spiritual disability—doubt. When the other apostles proclaimed that they had seen the risen Christ, Thomas hesitated to believe without tangible evidence. Despite this skepticism, Jesus did not cast him aside. Instead, Jesus met Thomas where he was, offering the evidence he sought. Thomas’ journey from doubt to profound faith illustrates Jesus’ patience and willingness to meet individuals in their moments of uncertainty. 5. James and John: The Sons of Thunder Tamed by Love

James and John, brothers known as the “Sons of Thunder,” were characterized by their fiery temperaments. Their disability lay in their quickness to anger, as demonstrated when they asked Jesus to call down fire from heaven upon a Samaritan village that rejected them. Jesus, recognizing the potential for transformation, did not rebuke them harshly but rather guided them toward a more compassionate understanding of their mission. This journey from wrath to love showcases the power of Jesus’ transformative love in reshaping the apostles’ characters. In reflecting on the disabilities and struggles faced by these apostles, it becomes evident that Jesus did not seek perfection in his followers. Instead, he saw their potential for growth and transformation. The apostles’ journeys are not just historical narratives; they are timeless lessons about the capacity for change within every individual. Through these stories, we are reminded that disabilities come in various forms— whether societal prejudice, impulsive behavior, spiritual blindness, doubt, or a quick temper. Yet, the overarching message is clear: with faith, love, and divine guidance, these shortcomings can be transformed into strengths that serve a higher purpose. In the diverse tapestry of the apostles, we find a profound lesson—that no matter our limitations, we are valued and capable of contributing to a greater good. The apostles of Jesus Christ exemplify the transformative power of faith, proving that, with divine guidance, even the most seemingly insurmountable disabilities and personal struggles can be overcome in service to God and the Kingdom. God bless!

Special Needs Living Indy

SP ONSOR SP OTLIGHT

Dynamic Music Service, INC: Harmonizing Lives Through Music Therapy BY JAMIE MCCABE

ocated in the heart of Greenwood, Indiana, Dynamic Music Service, INC, will be celebrating its first decade of operation this year. Founded in 2014 by music therapist Jennifer Pinson, this unusual business is striking a chord with individuals of all ages and abilities. Pinson, who hails from the picturesque town of Monrovia, IN, now calls Greenwood home. Dynamic Music serves about 250 clients, primarily in Greenwood and the southside of Indianapolis, but provides some services in surrounding counties as well. Originally, Pinson had a different career path in mind. She started college intending to double-major in music education and psychology, but when a class introduced her to the world of music therapy, she had a pivotal moment. As she puts it, “From that point on, my destiny was set.” She switched colleges, earned her degree, and eventually became a boardcertified music therapist (MT-BC). Dynamic Music Service sets itself apart

January 2024

TESTIMONIALS FROM CLIENT’S FAMILIES: My daughter loves music and really enjoys her sessions. Her therapist is very accommodating and supports her goals and personal ambitions. The work she does during her sessions gives her confidence, improves her expressive language skills and complements her interests. We are so happy to be receiving these services from DMT and grateful for her therapist’s commitment. — A CLIENT’S MOM

“Music Therapy has been a wonderful addition to Nic’s treatment plan, as he loves music. It creates interaction and holds his attention, which is a positive since he has such a short attention span. It’s a challenge to understand his interests. It is obvious that he enjoys the music therapy. He does not have much expressive language but he says “yes” when asked if he enjoys music therapy. I appreciate his opportunity to be engaged in this therapy. I can see progress, which is great”. — NIC’S MOM.

by serving clients of all ages, from small children to elderly individuals in hospice care. Employing a community-focused approach, therapists will meet clients where they are most comfortable, which may be at home, in school, in an elder care facility, or even in hospice care. This is especially helpful for parents and guardians of special needs children, many of whom spend countless hours shuttling the child between school, medical appointments, and visits to multiple therapists. “Life is busy enough, and reaching people where they are [avoids the burden] of having to add on one more thing,” Pinson noted. While most Dynamic Music clients are covered by the Medicaid waiver, services are also sometimes paid for through hospice, schools, businesses, and private payments. Once a month, the company offers a wellness class that is geared toward non-disabled working individuals who want to increase their coping skills and meet others with similar life experiences. Additionally,

group and individual music therapy sessions are offered at the Southport office, which opened in 2019. The company further distinguishes itself by offering ongoing training for its therapists during work hours and providing multiple layers of supervision. “Our therapists must complete 100 hours of continuing education in a 5-year period to renew their board certifications,” Pinson said. “We provide many of the resources to allow our team members to do that.” This commitment to professional development ensures that the team remains at the forefront of the field, offering the best possible care to their clients. Dynamic Music Service also contributes to the music therapy profession as an American Music Therapy Association-approved training site for National Roster Interns. So far, the company has hosted 16 interns, working primarily with students from Saint Mary-of-the-Woods College, IUPUI (soon IU-I) and the University of Indianapolis (U-Indy). Pinson serves as the Vice President-Elect for the Great Lakes RegionAmerican Music Therapy

Association and has held positions within the Association for Indiana Music Therapy. As a business that values community connection, Dynamic Music Service sponsors and takes part in various local events, including the Out of the Darkness Walk, Autism Community Connections Trunk or Treat, and The Southside Disability Fair. The company also hosts a concert that gives clients a chance to show off their talents. Supporting Special Needs Living is important to Pinson because of the impact the magazine has in the local community. “You not only provide services for families, but you bring providers together,” she said. “When we work together, we make a greater impact in the community.” Dynamic Music Service, INC, stands as a testament to the power of music therapy and the profound impact it can have on individuals of all ages and abilities. With an unwavering commitment to the community and its clients, the company continues to enrich lives by using the power of music to heal, inspire, and connect.

Special Needs Living Indy

January 2024

Kelly Lyons

Milestones and Favorite Memories in 2023 In 2023 our Special Needs Living-Indianapolis & surrounding Areas family and friends have been busy making incredible memories and achieving amazing milestones!

Kelly Lyons

Hikaru Kikuchi with dad Toru and mom Yukiko

Happy Birthday Kelly Lyons! Kelly has survived a blocked intestine twice, open heart surgery, leukemia, celiac disease, thyroid disease, 7 ear surgeries and 8 leg surgeries. She never stops smiling. This year she turned 21 and celebrated at a karaoke bar that was packed with family and friends. It was pure joy!

Hikaru Kikuchi with dad Toru and mom Yukiko

Hikaru Kikuchi: Hika loves music. Hika’s 30th birthday was in April, so to commemorate the big 30, Dad invited Hika and his mom on stage at one of Dad’s live music gigs and they played a couple of songs as a family. The crowd was very kind and gave them a round of applause. Come out and hear Infinity at the SNL New Years Bash 2024!

Special Needs Living Indy

NONPROFIT SP OTLIGHT

ancock County PossABILITIES is an organization that works to provide an interactive livestock experience for youth of all abilities. It caters to individuals aged 3-25 with emotional, physical, and/ or intellectual disabilities that have the desire to work with livestock. They accept kids and families that are willing to travel to Hancock County to participate. The program is free for anyone who wants to be a part of it. “I started this program in our county because of my daughter, Emery,” Emily Meckel shared. “She is 5 years old and has faced unexpected challenges since birth. Emery was born with Down syndrome and was later diagnosed with schizencephaly, a cleft brain. Despite these diagnoses, she is not defined by them. Growing up on Sunshine Valley Farm in Carthage, IN, where we raise commercial and club lambs, Emery has been exposed to agricultural experiences and developed a love for working with lambs. Witnessing her passion, I had a vision to provide similar opportunities to other children who may not have the same access.” Participants are paired up with a mentor who owns an animal and has experience in livestock husbandry and showmanship. During farm visits, participants learn animal husbandry, show techniques, and show preparation from their mentor. This allows them to have experiences similar to their peers in the agricultural industry. Each mentor/ participant team, along with the animal, then take part in a non-competitive showcase during the annual Hancock County Fair, allowing them

January 2024

HANCOCK COUNTY POSS-ABILITIES, INC. BY ANGIE ARLINGTON

to demonstrate what they’ve learned and accomplished. “Although the showcase is our main event, we have other events planned throughout the year as well that are primarily livestockbased to help promote involvement for families,” Emily explained. “Our goal is to provide an experience that fosters community growth, not only among the disabled individuals but among entire families. Bringing families together with the animal is a tool to create what we like to call the “ripple effect.” What I mean by this is that all the individuals involved-mentors, participants families/ caretakers--will have a different perspective as the youths grow and become productive members of society.” “This program has gone beyond what I could have ever envisioned and I am proud and grateful for our community and the support we have behind us,” Emily added. “My board and sponsors, both local and from across the country, have helped make this program possible, along with the youth and families involved. These families and kids are incredible and are changing the way disabilities are perceived and recognized. I have loved watching them all work together to find common ground with the livestock, but beyond that, building friendships outside of the ring.”

TESTIMONIALS: “I just wanted to say that the PossABILITIES program created by Emily and Justin Meckel is wonderful. I was blessed to be a judge and I was blown away by the young contestants! The other thing that made me extremely proud were the mentors; these kids did a great job teaching these aspiring showmen. I think this program will do nothing but grow!” — ROB BARNHART (POSS-ABILITIES JUDGE)

“Because of this program, I now know that Kynlee just loves all livestock. It doesn’t matter what they are--pigs, sheep, horses--she just needs animals in her life and they need her. The animals just love her. Thanks for sharing your story. Sometimes that is all it takes to give some of us other moms the push we need!” — KASEY HEDGE (MOM OF KYNLEE, POSS-ABILITIES PARTICIPANT)

“The Hancock County Poss-ABILITIES program became so much more than just a program to our family. After one visit, it was like we had known each other forever. It was amazing to see how Braxton and Keaton became not just a mentor and a participant but truly best friends that worked hard together all while having fun! They taught each other so much without even realizing it, and that in itself is what this program is all about. To see all the smiles and excitement on show day was so memorable! I will forever cherish that day. Our family is beyond blessed to be a part of such a special program.” — BROOKE GREEN (MOM OF BRAXTON, A MENTOR AT POSS-ABILITIES)

“I just wanted to reach out and thank you for all that you have done for these kids. This was such a wonderful experience for our whole family. It seems that three was the magic age where people no longer treated my son like what he is-a child. A sweet, adventurous, energetic, loving child. With the program you started I never once had to worry about how he would be treated or looked at. He was surrounded by adults and children who just saw him as a child. I know you put a TON of work in behind the scenes and I just wanted you to know that it didn’t go unnoticed. Thank you!” — CARMELLA ANDERSON (MOM OF ACETON, POSS-ABILITIES PARTICIPANT) Special Needs Living Indy

SELF ADVOCATES

MEET ALEX DERON BY ALEX DERON

y name is Alex Deron and I live in Carmel, IN, with my parents. I currently work at Danny Boys in Carmel as a server and perform other tasks as needed. I also do DJ events, mostly on a volunteer basis, going by the name of DJ Echo. I enjoy getting myself out there as much as possible and my hopes are that someday I will have a career as a DJ or something else to do with music. I am very passionate about music and currently take guitar, piano, and music production lessons. I have also produced my music on YouTube, Amazon Music, and Spotify and am looking for new avenues to express myself musically. In addition to my music endeavors, I also like to bike, hike, listen to music, watch movies, and go out to eat and/or drink coffee while socializing with friends. I’m also into classic cars, classic rock, and all genres of video games. I have faced many challenges throughout the years but am doing better than I ever have over the past six months. I am on the autism spectrum, and I struggle with mood instability, so I have social difficulties, mostly with boundaries and understanding how to talk and interact with people. I sometimes shut down and avoid going out in the community due to social fears, even when I really want to. I’ve also had difficulties with anger, impulse control, and managing my emotions. During my school years, I struggled with friendships and getting along with teachers which led to a placement in an alternative school in middle school. I was able to attend high school in a regular setting, but I still had lots of behavior issues and was in trouble quite a bit. My selfconfidence has also been an issue my entire life and I have a lot of fears in general. I always felt like a loner and that few people truly understood me. My life has steadily gotten better since I left high school. One of the reasons I am currently doing so well is that I started working at Danny Boys about six months ago and I love the people there and the work I get to do. I also DJ there once per week and the feedback I get from people on my DJ skills has boosted my self-esteem. The staff at Danny Boys understand my autism, never judge me, and are always trying to understand me better and help me succeed. Other reasons for my behavioral and emotional improvements come from learning to play multiple instruments and taking DJ and production lessons at Bach to Rock over the past 4 years. Due to my

January 2024

training there, I have been able to obtain some DJ engagements and I really love performing for others. I’m rarely ever depressed now, which has been a huge problem in the past, and I have more confidence than ever because I am doing exactly what I want to do in life. I used to engage in destructive patterns of behavior but now I’m controlling my emotions and anger better, have stopped engaging in negative thinking as much, and my relationships with family members and friends are much improved. Many resources and support from others have helped me with my progress. In addition to the people at Bach to Rock and Danny Boys, my parents, friends, and behavior consultant have helped me grow. My behavior consultant has been especially helpful in working on social relationships and managing my anxiety and anger. I also am now more attentive to my health, as I bike, walk, and work out daily. I recently started going to church on a regular basis and the people there have been supportive of me in many ways, including my spiritual growth. It has opened me up to more social opportunities, which is what I probably need more than anything else. I am also lucky that my parents provide me with many resources that others might not have. They give me my privacy and are currently working on my own area in the house, which will even include a kitchenette and bathroom, so it will be like living in an apartment. Due to feeling better about myself, I have

In addition to my music endeavors, I also like to bike, hike, listen to music, watch movies, and go out to eat and/or drink coffee while socializing with friends. I’m also into classic cars, classic rock, and all genres of video games.

My life has steadily gotten better since I left high school. One of the reasons I am currently doing so well is that I started working at Danny Boys about six months ago and I love the people there and the work I get to do.

been much more respectful to my mom. I have often taken things out on her since she is the person I trust the most. My lessons at Bach to Rock, and the DJ events that they helped me set up, have made me more patient and caring toward others. These experiences have taught me to be more calm, focused, attentive to details, and self-confident. The staff at Bach to Rock helped me put together three albums that I have produced. They have also been instrumental in helping with career guidance and have opened doors that will hopefully help me do what I love to do on a full-time basis someday. My advice to others who are on the autism spectrum or struggle with the same emotional and behavioral problems I do is this: I spent way too much time in a job where I was not happy but was afraid of change. Take a risk and do something you truly enjoy as life is too short to dislike what you do for a living. Also, find a hobby or a skill that you love and put your heart into it. Special Needs Living Indy

FEATURED FAMILY

meet the Meckel family BY JAMIE MCCABE • PHOTOS BY 21 VINES PHOTOGRAPHY

mily and Justin Meckel both grew up in Hancock County, though they didn’t meet until after college. They have resided near Carthage, on their serene half-mile-away-from-the-nearestneighbor farm, for nine years. They named the place Sunshine Valley Farm for their daughter Emery, who is the sunshine in their lives. Amid the serene landscapes of their rural home, the Meckel family has faced considerable challenges. Their journey as a family is one marked

January 2024

by resilience and an unwavering commitment to their daughter. Born with Down syndrome, Emery was diagnosed with schizencephaly (brain cleft) at age two. The condition affected her verbal communication

and ambulation ability. An atrioventricular (AV) canal defect necessitated open heart surgery, only adding to Emily and Justin’s anxieties. The challenges were significant, but Emery’s indomitable spirit has been a source of inspiration. She faces her difficulties with remarkable happiness, undeniable sass, and an unrelenting determination that touches all who meet her. Their journey has offered the Meckels a unique perspective on parenting and the perception of disability. One piece of advice

they cherish came from Emery’s neonatologist while she was in the NICU: “Do not let anyone ever put her in a box.” Emily and Justin embraced this wisdom, vowing not to let anyone define their daughter or family. Their experience has shown them that Emery is a unique and precious gift that has enriched their lives and those around her. Now five years old, Emery attends developmental preschool at Eastern Hancock Elementary. She receives a range of therapies at school, including physical therapy (PT), occupational therapy (OT), and speech therapy. She also participates in outpatient services, including music therapy every other week. The Meckels share their home with a menagerie of animals. The farm was a project born out of Emily’s need for a postpartum distraction following Emery’s birth. They raise both commercial and show lambs. Their other animal companions include two old farm dogs named Daisy and Reba, along with Emery’s pups, Maggie and Jake. Despite the challenges, the Meckel family has celebrated many memorable moments. Emery’s journey has been one of adaptation and learning. Her expressive abilities

The Meckels share their home with a menagerie of animals. The farm was a project born out of Emily’s need for a postpartum distraction following Emery’s birth.

may differ from typical children, but she has developed ways to convey her thoughts and feelings. Signing words and using facial expressions, Emery communicates effectively with her family. Her love for the farm, particularly the sheep and lambs, is evident in her enthusiasm for being in the barn and helping care for the animals. Another source of joy in Emery’s life is music, especially the music of Taylor Swift. Despite her difficulties with verbal expression, Emery’s love for music allows her to connect with others and the world around her. Justin graduated from Purdue University in 2007 with a degree in building construction management. He is the owner and operator of Meckel Construction, specializing in large-scale residential remodels and new home builds. Emily also plays a role in the construction company, assisting part-time with office work. However, their most significant job is providing the care and support that Emery needs. The family is deeply committed to their community. They have created Hancock County PossABILITIES, an all-inclusive livestock experience designed for children of all abilities. Emery is actively involved in this

The family is deeply committed to their community.

Special Needs Living Indy

program, reflecting the family’s dedication to creating opportunities for children with disabilities. Their journey has been made easier with the support of various organizations and professionals. The Lucky Mama Project, Down Syndrome Indiana, and the local FUSE office have all played essential roles in helping them navigate the world of special needs. The medical professionals at Community North Hospital, where Emery was born, offered vital resources and support when they brought their brand-new baby home. Despite the challenges they’ve faced, Emily and Justin are deeply

January 2024

grateful for the joy and love that Emery has brought into their lives. Emery has shown them that every day may not be easy, but there is always a bright and sunny day waiting for them. For those who have just moved to their community and are seeking support groups, Emily advises looking on social media and connecting with their children’s physicians to inquire about local groups. In their experience, it truly takes a village to raise children, especially those with unique needs. She encourages newcomers not to be afraid to reach out, ask questions, and advocate for their children. There is a fitting place for every family, regardless of their children’s diagnosis or disability.

Despite the challenges they’ve faced, Emily and Justin are deeply grateful for the joy and love that Emery has brought into their lives.

Special Needs Living Indy

PLANNING FOR THE FUTURE M AY F E E L L I K E A B I G T A S K , BUT LIFECOURSECONNECT WILL HELP BREAK IT DOWN FOR YOU. Whether you're looking for day-to-day ideas and connections or big picture planning, LifeCourseConnect is the ultimate tool for Individuals and Families in Indiana's Disability community. LCC is here to help you build the future you want for yourself or loved-one, so start today!

As a waiver-supported service, get started creating and living YOUR plan. (317) 626-4387 | LifeCourseConnect.com/Indiana

January 2024

Special Needs Living Indy

January 2024

Sensory Blurb! Adaptive Shoes Sensory items to better support the community

Weighted blankets are blankets designed to be heavier than standard blankets. You can commonly find them in knitted or duvet options. Duvet-style weighted blankets use beads or other dense fillers to add weight. Knitted weighted blankets use dense yarn to create a heavier weight. There are many benefits of using a weighted blanket! The overall purpose is to help your body find calmness by using deep pressure stimulation. Weighted blankets can benefit by: · Offering comfort and security · Soothing anxiousness and stress · Improving sleep quality · Relaxing the central nervous system Contact us today! Our team at Specialized Home Care Services carries a great selection of weighted blankets and stuffed animals.

(888) 506-4182 | specialized4u.com 621 N Central Ave, Connersville, IN 47331 specializedhomecareservices@gmail.com.

or an ankle-foot orthosis (AFO) or splint to do its job properly, it needs to be worn with the right shoes. Smashing fashion with function, BILLY Adaptive Footwear incorporates zippers that go along the side of the shoes and around the toe, allowing the upper of each shoe to open and fold over completely. This allows the wearer to place his or her foot onto the shoe footbed unobstructed. Then with a tug on the zipper pull the shoe closes and secures over the top of the user’s foot. It’s simple and easy. These shoes can fit children and adults. For an individual receiving waiver services, we can help you access your waiver funds to cover the cost of adaptive shoes. Feel free to reach out and find out how we can help you! Ruth Roberts at Specialized Home Care Services 621 N Central Ave Connersville, IN 47331 ruth@specialized4u.com (317)-348-0708 Mobile (317)-348-0708 Fax Special Needs Living Indy

Single Mamas Seen: Helpful Techniques for Dealing With Stress BY CHRISTINA MCGAIRK

et’s face it, raising children with exceptional needs is stressful. No matter how much we love our humans, our daily lives are more complex. As a single parent, there have been times when I didn’t think I could do it. I’ve had a few surgeries, and a couple of times where I almost died because of post-surgical complications. While I was in the hospital, my mom, my fiance at the time, and his family helped with TiTi. She was well taken care of. You would think I would be appreciative of that, and I was. Yet, when I came home to recover and saw how things were running like a well-oiled machine without me, my mental health took a toll. I became stressed out and depressed and suffered an anxiety attack because I felt that as TiTi’s mommy, I should be able to take care of her better than anyone. But during that time, I couldn’t. I could barely take care of myself. So I sought help and ended up with a wonderful therapist who helped me deal with my emotions and stress. One of the methods she used was mindfulness. According to Gina Platten, a licensed clinical social worker, mindfulness is “being present and aware with a purpose in mind; being attentional; connecting with your emotions.” Platten, who is the owner of Mindful Innovations Counseling LLC, in Avon, IN, provides tailor-made behavioral intervention and psychotherapy services for neurodiverse children and adults. Mindfulness is one of the techniques she uses with her clients. This includes parent-child yoga, grounding techniques

January 2024

Mindfulness is “being present and aware with a purpose in mind; being attentional; connecting with your emotions.”

such as deep breathing, and focusing on the five senses: sight, touch, sound, smell, and taste. Platten also uses self-hugging, while using the mantra, “I am safe, I am in control, I am okay.” Coincidentally, self-hugging is a technique TiTi learned in school to calm herself down. We also do this at home. According to a 2021 study published in the Comprehensive Psychoneuroendocrinology Journal, hugging can decrease the body’s cortisol levels, a.k.a., stress hormones, after a psychologically stressful event. When asked what single mothers raising exceptional needs children, or families in general, can gain from mindfulness, Platten had this to say, “Mindfulness helps leave the past and the future where they belong and [keeps us from dwelling] on missing out or not having something. It’s about setting intentions more consciously.” My mindfulness activities with TiTi have included decorating and painting rocks and creating sparkly sensory bottles. Anything I could do with my hands kept me in the present moment, not worrying about the past or future. But since my daughter is in her preteen years, my single-parent structure has changed. I realize my need for my own mindfulness moments. Dreisoerner, A., Junker, N. M., Schlotz, W., Heimrich, J., Bloemeke, S., Ditzen, B., & van Dick, R. (2021). Self-soothing touch and being hugged reduce cortisol responses to stress: A randomized controlled trial on stress, physical touch, and social identity. Comprehensive psychoneuroendocrinology, 8, 100091. https/doi.org/10.1016/j.cpnec.2021.100091

Special Needs Living Indy

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January 2024

"Our team recently had the privilege of completing three projects for the Visually Impaired Preschool (VIP) in Indianapolis! We were able to bring a creative, fun element to millwork in this project that made it come to life."

317-890-1100 • cisindy.net •

@CiSIndianapolis

TRANZACTCARD Put money back in your pocket!! Do you know about Tranzact Card?

Instead of getting only 1%, 3% or 5% back using a credit card, you can now jump on board with Tranzact card and get matched $1 for every $1 you spend in the form of Zbucks. This is not a credit card. You use it just like you do your bank card--transfer money onto it and use it to buy the same items you do with your bank debit card. It’s backed by the FDIC and Visa system. Can you imagine making your house payment using this card and getting matched dollar for dollar? You can use ZBucks at the Tranzact online store to buy almost everything you can buy on Amazon. Zbucks can also be used to buy dozens of gift cards to use at any of your favorite stores, and even to buy flights and travel packages. Check the links and QR codes below to learn more about this opportunity, or log in to calls each Wednesday every hour on the hour from 129pm EST At the link here: www.tranZactCard.live

Find out more ways to get additional money for using this card. it’s a great way to stretch your dollar. https/communityimpact.tranzactcard.com/

Scan or Click on this link to learn more about how to stretch your dollar & Get your Tranzact Card today: https://communityimpact. tranzactcard.com/

Check out this video to learn more: https://my-tranzactcard.com/ special-needs

At LEL Home Services, You Are More Than Just a Number - You Are Family We work with individuals with intellectual and developmental disabilities and the aging population and their families to live their best life, funded by the Medicaid Waiver. We eliminate boundaries of community integration to allow our individuals to experience limitless engagement opportunities.

(317) 387-1443 | lelhomeservices.com Special Needs Living Indy

SAVE THE DATE

You’re Invited to the Special Needs Living-Indianapolis & Surrounding Areas NEW YEAR’S BASH Come celebrate the New Year with many other special needs families at the New Year’s Bash! WHEN: January 20, 2:00 p.m. to 5:00 p.m. WHERE: DDSi and Adaggios Banquet Hall, 5999 W. Memory Lane, Greenfield, IN 46140 This event is for adults and kids with special needs, along with the supporters of Special Needs Living-Indianapolis & Surrounding Areas. There will be activities and games for kids, and you are welcome to bring your caregiver to the event to help. Parents will be able to enjoy an afternoon of fun and entertainment. We will have live bands, thanks to Rock Garage and Infinity, dancing, appetizers, beverages, games, and more!

https://www.eventbrite.com/ e/771712110697?aff=oddtdtcreator Scan to register

January 2024

Special Needs Planning & Elder Law Attorney

Here to help you put plans in place to give you peace of mind.

Live Your Best Life Let Us Help You On Your Path

Elizabeth A. Homes is a special needs planning and elder law attorney. She has been licensed and practicing law since May of 2014. Her practice at the Law Office of Elizabeth A. Homes LLC is focused on Special Needs Planning, Guardianships, Elder Law, Estate Planning, and Probate Work. This includes Wills, Powers of Attorney, Advanced Directives, Trusts, Trust Administration, Medicaid Planning, Special Needs Planning, Guardianship, and Probate. She is admitted to practice law in the State of Indiana. We ask "What If?" so you don't have to ask "What Now?" Residential Habilitation, Day Habilitation, Structured Family Caregiver, Respite, Transportation, Participant Assistance Care, Attendant Care and Home Community Assistance

Supporting Clients by Encouraging Independence Elizabeth A. Homes, Esq., MBA ehomeslaw.com | 317-660-5004 elizabeth@ehomeslaw.com 9245 N. Meridian Street, Suite 301, Indianapolis, Indiana 46260

317-516-1178 | 765-615-9356

abccommunityservices.com

6801 Lake Plaza Dr. Ste. A108 Indianapolis IN 46220 We are currently hiring caregivers and accepting new clients. Special Needs Living Indy

Outside the Box is Inside the Fishers Community

hen my son, Will, was eight, I was seeking day camps that would provide supports for children with disabilities. I learned about Camp Create U at Outside the Box (OTB) in Indianapolis from another parent, which is how I hear about so many resources. This was my son’s first day camp so his home healthcare nurse would accompany him. I didn’t have any expectations except that I hoped he would be safe and not have too many meltdowns. But what happened instead was beyond my expectations. Will was not just engaged, he was excited, joyful, loved, and included. And for the first time since Will had been born, I saw what his future might look like, what could be possible. Until then the only vision I could imagine for him was a nursing home or a sheltered workshop where he would make pennies on the hour. It’s not that I didn’t dream of more or want more, but at that time,

January 2024

BY DAROLYN “LYN” JONES

these were the options available. I’m a planner, so even though Will was still very young, I was always looking forward. I visited nursing homes that take individuals with disabilities and those adult day centers and sheltered workshops and remember feeling so emotionally worn. I remember telling my husband that I’d rather he just stay home because after school was over, there was nothing meaningful out there for him. But that changed with Camp Create U. It’s just a weeklong day camp for children with disabilities and a small part of what Outside the Box does. But what Camp Create U did for my family and other families was introduce us to an adult day program for individuals with disabilities that was unlike any other in the greater Indianapolis area. I recently met with co-founder and board member, Kelly Hartman, and Executive Director, Michelle Miller, to better understand how

OTB operates and why their new location in Fishers is significant. OTB’s origins begin with Kelly Hartman and her staff at what was then Insights Consulting, a residential and behavioral supports company that provides Medicaid waiver services. At weekly meetings, her staff’s constant lament was—We have to do something different and better for our clients. Their clients weren’t receiving the services and supports they needed to live happily. The larger group settings and sheltered workshops were not meeting their client’s needs. Wanting to make better decisions for their clients and finding no available options, they created one. In 2008, they opened up a single conference room at the office to four young women, all friends, who had just graduated from special education services at Carmel High School. Their parents wanted them to stay together, so that peer group became OTB’s first class. They called themselves The Celebrities. With part-time

My early career was in education and when we talked about special education in the early 90’s, we used the term “mainstreaming.” The goal was inclusion of students with disabilities in the general education environment The Individuals with Disabilities Education Act of 1975 requires that disabled students must be educated in the least restrictive environment (LRE), which usually means educating them alongside their non-disabled peers as much as possible. Yet, as a former special educator and as someone who has a child in special education, I can assure

staff, the group was able to continue learning, creating, and going on outings in the community—just like they had been able to do in school. OTB has had a waitlist ever since. Why? Because “radio disability parents” meant the word about OTB spread like wildfire. What OTB was doing was so different from what anyone else was doing to serve and support adults with disabilities. In 2010, OTB introduced a curriculum that was loosely based on Maslow’s hierarchy of needs. Every human being is in pursuit of happiness, but the disability industry is focused on safety and health. Hartman knew there is more to life than that. Like everyone else, folks with disabilities want to be happy and feel loved. They want to give back and be valuable. OTB matches participants based on interests, creating peer groups of four, along with a staff member who acts as a facilitator. Peers engage in art, recreation, cooking, gardening, outings, reading, and much more. Each peer-group gets to decide how they want to address a particular area of the curriculum and what activities they want to do. The goal is meaningful individualized activities that promote relationships, autonomy, and independence. Special Needs Living Indy

you that inclusion doesn’t always mean included. Inclusion means my son is physically a part of general educational settings, but he is not necessarily welcomed or accommodated, and his academic and social successes are not the same as those of his neurotypical peers. There is a lot of undefined space between being excluded and included. OTB’s goal is not mainstreaming and it is not inclusion. It is belonging. According to Hartman, it is a culture that seeks to push the envelope well past the traditional disability thinking framework. Toni Hughes, Coordinator of Business at OTB, sums it up well: “Everyone entering our building is accepted for who they are and has unlimited possibilities.” OTB outgrew several locations before landing at its current main campus at 56th St. and Binford Blvd. in Indianapolis. They are now expanding to a second location in Fishers, IN. The OTB team has been working for five years on this expansion. The program will find its future home in the planned Fishers Community & Recreation Center in partnership with the City of Fishers Parks Department. “We are thrilled to finally be bringing Outside the Box programming to the Fishers community,” said Val Brennan, President of the Board of Directors. “We are grateful for the support of

the city of Fishers leadership and look forward to continued collaboration to serve the needs of the community. OTB has been active in the Fishers Advisory Committee on Disability and is helping people get jobs through our employment supports program in Fishers. In partnership with the SouthPointe Village Apartment development, also the first of its kind in Fishers, we are supporting people with disabilities seeking more inclusive and independent living.” “Expanding into Fishers with a day program is the logical next step in supporting this remarkable community,” added Michelle Miller, OTB Executive Director. According to Hartman and Miller, Fishers was a natural choice because it is an inclusive city. Fishers has long been recognized for its leadership in disability awareness, city design, and employment opportunities for individuals with disabilities. When I found Camp Create U for my son Will 12 years ago, I also found a fellow activist and friend in Kelly Hartman. We both serve on the Fishers Disability Committee, we have collaborated on other projects together, and we both teach at Ball State University. But for me Kelly is more than all of that, she’s a hope creator. OTB’s Mission:

To empower people with intellectual disabilities toward Personal Growth through Education, Self-Discovery, Leadership Development, and a Customized Career Path. OTB’s manifesto:

• We believe that all individuals deserve the opportunity to live a meaningful life. • We believe in the potential of every human being. • We believe in the value of community involvement and social support. • We believe in the importance of continued support for good mental, physical, and spiritual health. • We believe in promoting and supporting greater independence through creating an environment that enables 50

January 2024

and celebrates successes while also allowing opportunity through teachable moments. For individuals and their families who want to learn more about OTB, visit www.otbonline.org. To ask questions or schedule an intake for program consideration, email Fishers@ otbonline.org. To see OTB in action, anyone is welcome to schedule a tour of their program by calling (317) 253-6658. OTB accepts the CIH and FSW Indiana Medicaid Waivers. Follow OTB on social media!

https/www.facebook.com/ outsidetheboxinc/ https/www.instagram.com/otbonline/ https/www.youtube.com/channel/ UCXek6z4j5gytSjyW8Di2r-g OTB needs you!

• Learn about volunteer opportunities here: https/otbonline.org/volunteer • Find out about all the different ways you can donate here: https/ otbonline.org/donate-today • To participate in the annual golf Chip In fundraiser: https/ otbonline.org/events • To participate in Megan’s Ride: https/otbonline.org/megans-ride

Music Therapy & Wellness Early Childhood Music Classes Sign & Sing Virtual Classes

EXPERIENCED

NAVIGATORS SUPPORTS SERVICES OUTCOMES

Music Therapy can help individuals of all ages and abilities, including those with: Alzheimer’s Disease and Dementia ° Autism ° Cerebral palsy Developmental Disabilities ° Down Syndrome End-of-life care (Hospice) ° Intellectual Disabilities Mental health ° Neurological disorders Psychiatric disorders ° Rehabilitation

7502 Madison Ave, Indianapolis, IN 46227 (317) 829-6654 dynamicmusicservices.com

Connections Case Managers meet people where they are. We help individuals and families navigate systems as well as share information and ideas to achieve dynamic results. We understand that "life is the journey and not the destination".

Medicaid Waiver Case Management

317-605-0060 | connectionsin.com Special Needs Living Indy

ALTRUIST

IT'S ALL TRUE: U COME BEFORE I

JOIN OUR TEAM! ARE YOU LOOKING FOR PASSION-FILLED WORK? Explore a position with us as a

Create enjoyable experiences in the community!

Competitive pay plus Sign-On Bonus $0.62 per mile Mileage Reimbursement

Community Liaison Professional & Direct Support Professional

Work with a purpose! In this role, you will provide interactive supervision and support to children and adults with intellectual disabilities in their homes and community. We are looking for determined individuals that can achieve this through respectful interactions in our client's homes, the creative use of resources, networking and involvement in the community at large. To learn more, scan the QR code to be taken directly to the open positions listed on our Careers page.

7172 GRAHAM ROAD, SUITE 125 • INDIANAPOLIS, IN 46250 • (317) 547-3041

Requires: Drivers License Registered Vehicle Auto Insurance Smart Phone

18 Years or Older High School Diploma, HSE, GED Pass Background Check Pass Drug Screen

Estate Planning

Amiable Home Care Inc. is a multi-service home care agency. We specialize in helping individuals from all age groups. We assist with errands, light house work, medication reminders, bathing, food preparation, and lots more! We accept A&D and TBI Waivers. For private pay, ask about our rates. Providing Behavioral Health Services under the Family Supports Waiver (FSW) and Community Integration and Habilitation Waiver (CIH). We currently offer Participant Assistance and Care (PAC) Structured Family Caregiver Levels 1, 2, 3 Family and Caregiver Training Wellness Coordination Residential Habilitation & Support and Day Habilitation Attendant Care and Respite

317-802-1746 • amiablehomecare.org

@AmiableHomeCareinc 52

January 2024

Get Immediate Results – And Long-Term Support

Experienced Attorneys Serving Hendricks, Boone, and Marion Counties and beyond. Call us today 317-852-2422 or visit hostetterlegal.com to schedule your consultation.

We see your child. We see you. Navigating the world of autism can feel overwhelming. But we believe that your child, with all their unique strengths and potential, deserves the best shot at success. Whatever the journey brings, we’re here. Our work goes beyond providing ABA therapy; it’s about igniting that spark of joy and confidence in your child. From high-functioning children to those who require more support, our family-oriented, in-home Applied Behavior Analysis (ABA) services are personalized for every level. We are passionate about nurturing your child’s individual potential and bringing out their best, right where they’re most comfortable—at home.

Whether your child has already received an ASD diagnosis or you’re still figuring things out, we can help.

NEW TO INDIANA

317.773.0500 | baboveservices.org info@baboveservices.org | @BAboveABA

We’re hiring BCBAs and RBTs

Special Needs Living Indy

9151 Currency St. Irving, TX 75063

Special Needs Living Indy January 2024 Digital Issue

Articles inside

Outside the Box is Inside the Fishers Community

Single Mamas Seen: Helpful Techniques for Dealing With Stress

SENSORY BLURB! ADAPTIVE SHOES

MEET THE MECKEL FAMILY

SELF ADVOCATES: MEET ALEX DARON

NONPROFIT SPOTLIGHT

Milestones and Favorite Memories in 2023

SPONSOR SPOTLIGHT

PASTOR'S CORNER

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