Down Syndrome Association of South Texas • 2800 NW Loop 410 • San Antonio, TX 78230 • 210-349-4372
Volume 14, Issue 2
april 2012
What’s
inside...
Executive Director................1 HUGS...................................1 Support Groups...................2 Playgroup..............................3 Kid Connection....................3 Splashtown...........................3 Teen Club.............................4 Adult Matters!......................4 D.A.D.S. Golf Tourney.........4 Eva's Heroes.........................5 Outreach...............................5
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Downs Keeping Up With
Message from Terri Mauldin ... The most exciting news these days is the Down Syndrome Association of San Antonio has changed its name! We are now the Down Syndrome Association of South Texas (DSASTX). We also have a new and revised website, so visit us now at www.dsastx.org.
organization that is interested in sponsorship opportunities for the Buddy Walk, please contact me.
This name change shows the growth we are experiencing and also helps us identify the area where we can provide support and services. The DSASTX now has families in not just Bexar county, but all the counties surrounding it. In addition to the Parent Support Group meetings on the north side at Coker UMC, we now have monthly meetings on the south side of San Antonio, Boerne and New Braunfels. We hope to expand further and provide meetings in other outlying areas.
On Saturday, March 3rd, the Adult Matters participants dressed up in their formal Terri Mauldin attire and attended the 3rd annual Spring Formal held at Aldaco’s at Sunset Station. I want to thank Aldaco’s for the party room, Richard Hughes for the DJ services, Chris Reilly for the wonderful photos, and the ladies (and gentleman) from the San Antonio Junior Forum for helping us as volunteers. This was an extremely successful event, and we can’t wait for next year!
The DSASTX is planning a very busy summer and fall! We have the annual Spring Picnic at Landa Park on Sunday, May 20th and the Buddy Walk on Saturday, September 29th at Heroes Stadium. If you have a company or
Specs4Us...............................5 Working For You..................6 Audrey's Day........................6 Meet Julian...........................7 Board Highlight...................7 Moving Forward..................8 Summer Programs...............9 D.A.D.S.................................9 Spring Picnic........................9 Contributions.....................10 Join The Board!..................11 Who We Are.......................11 Calendar of Events.............12
Help Us Give Support
The DSASTX HUGS program is an easy way to donate through automatic monthly installments via all major credit cards or checking accounts. The minimum amount can be as low as $5 per month ($60/year). Every donation helps support all of the DSASTX programs. Visit the DSASTX website – HUGS link to start your monthly giving today!
Keeping Up With Downs
Support Groups Our monthly meetings of the Parent Support Groups are designed for people with Down syndrome. SAN ANTONIO – NORTHSIDE PARENT SUPPORT GROUP Coker United Methodist Church 231 E. North Loop Rd., Gibbs Room 1108 San Antonio, TX 78216 Our Northside Parent Support Group meets the 1st Tuesday of each month. Please note the new time 6–8 p.m. A light dinner will be served! Childcare is available with a required RSVP to Coker UMC at 210-494-3455 x245 at least 48 hours in advance. Please leave a detailed message when making a reservation.
NEW BRAUNFELS PARENT SUPPORT GROUP Gruene United Methodist Church 2629 East Common Street New Braunfels, Texas 78130 Our New Braunfels Parent Support Group (serving Comal and Guadalupe counties) meets on the 3rd Thursday of each month from 6–7:30 p.m. A light dinner is served. Childcare is available with a required RSVP to the DSASTX office at 210-349-4372. We look forward to seeing you there! Thursday, May 17 Topic: ARD Training #1 Speaker: Brighton Center Thursday, June 21 Topic: ARD Training #2 Speaker: Brighton Center
Tuesday, May 1 Topic: Special Needs Dentistry Speaker: Dr. Chu
Thursday, July 19 Topic: Buddy Walk Kick Off! Q&A Sign Up! Speaker: DSASTX Staff
Tuesday, June 5 Topic: Behavior Strategies Speaker: Lupe Castaneda, MS, MCBA
Thursday, August 16 Topic: Behavior Strategies Speaker: Lupe Castaneda, MS, MCBA
Tuesday, July 3 Topic: No Meeting due to July 4th Holiday!
BOERNE PARENT SUPPORT GROUP St. Peter the Apostle Catholic Church, Room 148 FLC 202 W. Kronkosky Street, Boerne, Texas 78006
Tuesday, August 7 Topic: Buddy Walk Kick Off! Q&A Sign Up! Speaker: DSASTX Staff SAN ANTONIO – SOUTHSIDE PARENT SUPPORT GROUP De Paul Family Center 7607 Somerset Road, San Antonio, TX 78211 Our Southside Parent Support Group meets on the 3rd Tuesday of each month from 6–7:30 p.m. A light dinner is served. Childcare is available with a required RSVP to the DSASTX office at 210-349-4372. We look forward to seeing you there! Tuesday, May 15 Topic: P.A.L.S. Training #3 Speaker: Brighton Center Tuesday, June 19 Topic: ARD Clinic #1 Speaker: Brighton Center Tuesday, July 17 Topic: ARD Clinic #2 Speaker: Brighton Center Tuesday, August 21 Topic: Buddy Walk Kick Off! Q&A Sign Up! Speaker: DSASTX Staff
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Our Boerne Parent Support Group meets on the 2nd Tuesday of each month from 6–8 p.m. A light dinner is served. Childcare is available with a required RSVP to the DSASTX office at 210-349-4372. We look forward to seeing you there! Tuesday, May 8 Topic: Advocacy 101 Speaker: April Langston Tuesday, June 12 Topic: Therapeutic Horseback Riding Speaker: Triple H Ranch Tuesday, July 10 Topic: Buddy Walk Kick Off! Q&A Sign Up! Speaker: DSASTX Staff Tuesday, August 14 Topic: Therapeutic Yoga Speaker: Jacqueline P. Valadez, Ph.D.
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Playgroup
Kid Connection
The Down Syndrome Association Playgroup is a playtime for children ages 0–3. The DSASTX will pay for entry fees to these activities (if applicable) for the child with Down syndrome and their siblings. Please RSVP for each event to Stephanie Anderson at sanderson@dsastx.org or 210-349-4372.
The Down Syndrome Association Kid Connection is our gathering designed for family social activities. We welcome all children with special needs and their families! Our events are specifically designed for ages 4–12. The DSASTX will pay the admission for the individual with Down syndrome and their siblings. Parents are responsible for their own admission. A discounted rate will be offered when possible. Please RSVP for each event to Stephanie Anderson at sanderson@dsastx.org or 210-349-4372.
Tuesday, April 17, 24 and May 1, 8 – KINDERMUSIK 11- 11:45 a.m., Music Arts Center Northwest (IH 10 & De Zavala), 12732 Cimarron Path, Ste. 100, 78249. Please RSVP if you are planning to attend since materials are needed for each lesson. Topic: Home Sweet Home – Your child learns best in the comfortable surroundings and everyday activities of home. So we’ll use this nurturing theme to turn our classroom into a pretend house. In your Home Kit, read together the story about the different kinds of houses animals make—from spider webs to birds’ nests. When you find these homes in your very own backyard, you reinforce the learning that’s happening in class. Home Kit: Home CD and magazine-style Family Guide (Includes the class story A House Is a House for Me). Saturday, April 21 – DSASTX Family Day aT FIESTA ESPECIAL All reserved tickets have been distributed, but you’re welcome to enjoy time with your DSASTX friends on Saturday from 10 a.m.–2 p.m. Fiesta Especial takes place on Friday and Saturday from 10 a.m.–10 p.m. Rackspace parking lot, 5000 Walzem, San Antonio, TX 78218. Tickets are $5/person. Sunday, May 20 – Annual DSASTX Picnic See page 9 for details. Friday, June 15 – Kindermusik 11 a.m.–12 noon Music Arts Center Northwest (IH 10 & De Zavala), 12732 Cimarron Path, Ste. 100, 78249. Please RSVP by June 13th to 210-349-4372 or sanderson@dsastx.org. Tuesday, July 10 – Kindermusik 11 a.m.–12 noon Music Arts Center Northwest (IH 10 & De Zavala), 12732 Cimarron Path, Ste. 100, 78249. Please RSVP by July 8th to 210-349-4372 or sanderson@dsastx.org. Saturday, July 28 – Family Swim Day at The ARC 10 a.m.–1 p.m. The ARC Pam Stephens Center has a fully-accessible pool! 6530 Wurzbach Road, San Antonio, TX 78240. Please RSVP by July 20th to 210-349-4372 or sanderson@dsastx.org. Don’t forget snacks, sunscreen and towels! Saturday, August 25 – DSASTX Family Day at Splashtown Additional information to the right.
Saturday, April 21 – DSASTX Family Day aT FIESTA ESPECIAL All reserved tickets have been distributed, but you’re welcome to enjoy time with your DSASTX friends on Saturday from 10 a.m.–2 p.m. Fiesta Especial takes place on Friday and Saturday from 10 a.m.–10 p.m. Rackspace parking lot, 5000 Walzem, San Antonio, TX 78218. Tickets are $5/person. Sunday, May 20 – Annual DSASTX Picnic See page 9 for details. Saturday, June 9 – Magik Theater Knuffle Bunny – A Cautionary Musical 2 p.m. • 420 South Alamo, San Antonio, TX 78205 You must reserve your tickets PRIOR to May 25th. No Exceptions! Please RSVP to 210-349-4372 or sanderson@dsastx.org. DSASTX pays for children with DS and their siblings. Adults are $5 each. Saturday, July 28 – Family Swim Day at The ARC 10 a.m.–1 p.m. The ARC Pam Stephens Center has a fully-accessible pool! 6530 Wurzbach Road, San Antonio, TX 78240. Please RSVP by July 20th to 210-349-4372 or sanderson@dsastx.org. Don’t forget snacks, sunscreen and towels! Saturday, August 25 – DSASTX Family Day at Splashtown See below for details.
DSASTX Annual Family Day at Splashtown Saturday, August 25th Families must arrive by 11 a.m. so group tickets may be purchased. No exceptions! DSASTX provides free admission for individuals with Down syndrome (ages 0-12) and their siblings OR free admission for teens and adults with Down syndrome (ages 13 and up) and one friend with special needs. All other tickets for parents, other family members, friends and guests will be charged the group rate admission. You MUST RSVP to 210-349-4372 or sanderson@dsastx.org no later than Monday, August 20th. Splashtown is located at 3600 IH 35 North, San Antonio, TX 78219. Don’t forget your towel and sunscreen! 3
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Teen Club
Adult Matters!
The Teen Club is open to any teen ages 13–17 with special needs. The goal of the Teen Club is to foster friendships, stimulate socialization, and increase positive self esteem. Chaperones will be in attendance at each event.
Adult Matters! is a social program specifically designed for adults with special needs ages 18 and older. The focus is on providing an environment to help them further develop their social skills, build friendships among other adults with special needs, and offer them safe and appropriate interactions within the community. In order to foster that environment, we encourage them to invite an age-appropriate peer (another adult with special needs) to participate with them.
The cost of Teen Club events will be covered by the DSASTX for the teen and one special needs, age-appropriate friend. Please RSVP for each event to Stephanie Anderson at sanderson@dsastx.org or 210-349-4372. Saturday, April 21 – DSASTX Family Day at Fiesta Especial All reserved tickets have been distributed, but you’re welcome to enjoy time with your DSASTX friends on Saturday from 10 a.m.–2 p.m. Fiesta Especial takes place on Friday and Saturday from 10 a.m.–10 p.m. Rackspace parking lot, 5000 Walzem, San Antonio, TX 78218. Tickets are $5/person. Sunday, May 20 – Annual DSASTX Picnic See page 9 for details. Saturday, June 23 – Bowling 3-5 p.m. • Bandera Bowling Center 6700 Huebner Road, San Antonio, TX 78238. Please RSVP by June 19th to 210-349-4372 or sanderson@dsastx.org. Saturday, July 28 – Family Swim Day at The ARC 10 a.m.–1 p.m. The ARC Pam Stephens Center has a fully-accessible pool! 6530 Wurzbach Road, San Antonio, TX 78240. Please RSVP by July 20th to 210-349-4372 or sanderson@dsastx.org. Don’t forget snacks, sunscreen and towels! Saturday, August 25 – DSASTX Family Day at Splashtown See page 3 for details.
DSASTX will pay the participation fee for both of them. Please RSVP for each event to Stephanie Anderson at sanderson@dsastx.org or 210-349-4372. Saturday, April 21 – DSASTX Family Day at Fiesta Especial All reserved tickets have been distributed, but you’re welcome to enjoy time with your DSASTX friends on Saturday from 10 a.m.–2 p.m. Fiesta Especial takes place on Friday and Saturday from 10 a.m.–10 p.m. Rackspace parking lot, 5000 Walzem, San Antonio, TX 78218. Tickets are $5/person. Sunday, May 20 – Annual DSASTX Picnic See page 9 for details. Saturday, June 23 – Bowling 3-5 p.m. • Bandera Bowling Center 6700 Huebner Road, San Antonio, TX 78238. Please RSVP by June 19th to 210-349-4372 or sanderson@dsastx.org. Saturday, July 28 – Family Swim Day at The ARC 10 a.m.–1 p.m. The ARC Pam Stephens Center has a fully-accessible pool! 6530 Wurzbach Road, San Antonio, TX 78240. Please RSVP by July 20th to 210-349-4372 or sanderson@dsastx.org. Don’t forget snacks, sunscreen and towels! Saturday, August 25 – DSASTX Family Day at Splashtown See page 3 for details.
The 1st Annual D.A.D.S. Golf Tournament on April 9, 2012 was a HUGE success! We had approximately 50 golfers play and all had an amazing time. Thank you to The Club at Sonterra for your hospitality, and to everyone who came out to support the D.A.D.S. group. We would like to thank the following sponsors for their contributions to the tournament: The Gordon Hartman Family Foundation Airtron BMC Green Plumbing Paul Swoyer Septics Anderson-Jenkins Signature Homes LWA, Inc Builders First Source J.B. Goodwin Builders 4
Congratulations to our tournament champions! 1st Place: Airtron Team: Eric Ramirez Dustin Svoboda Jr. Rodriguez Jeremy Wehde
2nd Place: LWA, Inc. Team: Brian Allerheiligen Steve Gaeta Scott Wunsch Larry Wunsch
3rd Place: Green Plumbing Team: Jason Edwards Dave Farley Jeff Jenkins Chuck Dowling
Longest Drive: Gregg Greebon Closet to the Hole: Jeff Jenkins with a Hole-in-One!!!
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Outreach Join us for a special showing of Hollywood’s latest family friendly film in a sensory friendly and accepting environment. Eva’s Heroes Special Presentations will be the 1st and 3 rd Tuesday of every month. Doors open at 5:30pm and the special presentation begins at 6:00pm.
b Brighter
Lighting b Sound b b Shorter Previews b b Accepting Environment b b Lower
www.santikos.com This showing is open to the public, however, we are catering to our special needs guests and a less than quiet theatre experience is possible. Guests with intellectual special needs will be admitted for free.
To find out which movie is showing go to http://www.evasheroes.org/ and then either: • Click on the icon to the right or • Join Eva's Heroes mailing list and check off to receive movie info or • Like Eva's Heroes on Facebook April 22 – Eva's Heroes 2nd Annual Ain't Gonna Resta Til Afta Fiesta Dance at Sunset Station from 3–5 p.m. The B-Sides (classic rock band) will play live for the dance. For ages 16+.
We would like to welcome our newest families to the Down Syndrome Association family! If you know someone who has a child or family member with Down syndrome, please let them know about the DSASA and the services we provide. We’d be happy to reach out to help in any way possible! Omar and Claudia Alba, parents of Evan Alba Dolores Arrambide, mother of Lucy Arrambide Rosario Corona, mother of Justin Avila Arturo and Valerie Ramirez, parents of Bethany Lynn Ramirez Josie Coleman, parent of Gary Cagle Lou Dayton, caregiver of Corina Cardenas Raul and Mary Ortiz, grandparents of Luke Castellanos Belarmino and Mary Ann Castellanos, parents of Luke Castellanos Francisco and Martha Cortes, parents of Hector Cortez Michael and Cassandra Fernandez, parents of Amelia Fernandez Marivel Romo, grandmother of Amelia Fernandez John and Kim Gerst, parents of Alexandria Gerst Aracelia Gonzales, aunt of Myra Gomez Fernando and Rebecca Gomez, parents of Myra Gomez Jeff Gonzales, sibling of Andria Gonzales Sandra Graham-Martinez, sibling of Lakisha Graham Donald and Tiffany Hoofard, parents of Carson Hoofard Melody Bodner, mother of Isabella Jones Kevin and Amanda Klearner, parents of Logan Klaerner Jose and Maria Lopez, parents of Gabriela Lopez Miguel and Maricela Mijares, parents of Xavier Mijares Maria Morales, mother of Jackelin Morales David and Deanna Gonzales, sibling of Veronica Moreno Hector and Carolyn Moreno, sibling of Veronica Moreno Rick and Daisy Reyes, parents of Evelyn Reyes Leonard and Pilar Rodriguez, parents of Sonia Rodriguez Richard and Leticia Sauceda, parents of Carmen Sauceda Barry and Flora Moore, parents of Ricardo Smith Arturo and Paula Sosa, parents of Hector Sosa Mario and Juanita Suarez, parents of Abraham Suarez Raul and Denise Valdez, parents of Raul Valdez, Jr. Antonio and Maria Zamora, parents of Andres Zamora Temperance Winfield Jessica Ramirez The Hutzler Family The Patterson Family
SPECS4US, Superior Precision Eyewear for Children Who Are Special, introduces a new concept in eyewear for children with Down syndrome that eliminates the problems commonly associated with traditional eyeglasses. The mission of SPECS4US is to improve the vision and quality of life for individuals with Down syndrome by providing affordable custom frames designed especially for them. The Erin’s World line of frames is engineered to fit the unique facial features of children with Down syndrome while offering stylish options handcrafted for an active lifestyle. Each pair of frames offers special design features not found anywhere else. Adult sizes and sunglass clips are also available. Created by the mother of a child with Down syndrome and 25 years experience as an optician, the Erin’s World eyewear from SPECS4US will help children and adults explore their world with enhanced vision combined with an exciting level of style. You can find the Erin’s world line of frames at: M Eye Vision Care, 616 FM 685, Ste 105A, Pflugerville, TX 78660. 512-252-7075. For more information and additional locations, visit www.SPECS4US.com or call 1-800-586-1885.
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Working for You Representative Trey Martinez Fischer By Leah Chapa Focus on the journey, not the destination. Joy is found not in finishing an activity but in doing it. ~ Greg Anderson Representative Trey Martinez Fischer encapsulates those words. What a joy it was to be able to interview him for this article. You just never know the many jewels you'll find when you spend a moment or two in another person's life. After graduating from UT Law School in 1999, Trey Martinez Fischer decided to move back to San Antonio. Having worked for the Texas Attorney General's office for 2 years, he realized the impact of political Representative office, decided to begin his campaign, and Trey Martinez Fischer was elected at the age of 29 to Texas House District 116. With a list of proud accomplishments, Representative Fischer has proven to be a man of action and focus. A few of his champion legislative initiatives include teacher certification reciprocity across state lines and helping to ensure the protection of the elderly against financial crimes. However, for our membership, interest peaks beyond his political success and down an older road of South Flores Street in a day when traffic could be timed by 9-minute intervals. The event of the day was the 100-yard dash. The bracket consisted mostly of family, all competing for the bragging rights of taking down the Goliath of runners – Uncle Ricky. Uncle Ricky was no ordinary competitor. When Fischer was a 5-year-old boy, visiting grandma was like touring a childcare center, the house bustling with children. Uncle Ricky was a bit of an enigma. He made strange noises that would startle any 5 year old. He wasn't verbal and his mannerisms clearly showed that he was special. Ricky had Down syndrome. On the 100-yard field of South Flores Street, however, it didn't matter that he had special needs. All that mattered was "who would dethrone him." Uncle Ricky was also active in his church volunteering as an usher. One of his main jobs was taking up the collection. Back in the day, the usher stood at the end of each pew and held a stick with a basket attached to the end, extending it in front of each congregant in that pew. The pastor of the church said that they received their best collection when Uncle Ricky was working because he would refuse to move the basket until his 'victim' obliged and 'willingly' made a donation. Then came adulthood. Even in the world of Down syndrome and the spectrum of abilities, there is that strong need for independence and the need to belong. Uncle Ricky, in so many ways, was no different than his peers. With a loving father sensitive to his son's needs, Uncle Ricky was able to get his first car. It was
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parked in the backyard of his house without an engine, but to Uncle Ricky … that was HIS car, and if anyone damaged it, they would get an earful. What's a car without someone to share it with? Again, in his very unique way, Uncle Ricky communicated his desire for a wife. Creatively, his family was able to meet his need. His aunt owned an optical store, and for advertising, she hired models to promote her business. One of the models was willing to correspond with Uncle Ricky and, in his mind, became his wife. He even had a ring that he wore to symbolize his commitment. I love the story of Uncle Ricky. It reminds me of my Julian, twenty years from now. I pray that the joy and innocence NEVER leaves his heart as it has remained with Uncle Ricky these many years. Representative Fischer considers himself blessed to have been a front-seat participant to this miracle of God. With his background and Uncle Ricky on his mind, Representative Fischer continues the fight in the educational arena. The key word he emphasizes is 'public'. Until we reconcile that the public is so diverse, we will not be able to equip the system with specific needs. Lack of access to resources can be limited by the amount of money invested; we need to put more money into the education of all children. Please take the time to write to Representative Fischer and thank him for his service to our city, to our state, and to the many families who have been blessed with their own Uncle Ricky. Representative Trey Martinez Fischer 1910 Fredericksburg Road, San Antonio, TX 78201
Audrey's Day 9th Annual Audrey's Day at the Beach It’s time for the 9th annual “Audrey’s Day at the Beach” in Rockport, Texas. The Shockley family will be hosting the event on Saturday, June 9 to help promote awareness of Down syndrome in memory of their daughter/granddaughter Audrey. The day will start at approximately 8:30 a.m. and last until dark at the Rockport Beach Park. There will be kayaking and cane pole fishing, in addition to boat rides on a nature study boat for viewing various birds and native wildlife. Or you can just hang out on the beach, build sandcastles, and play in the water. Don’t forget your lawn chairs, sunscreen, and beach toys. Once again, we will be using the large air-conditioned pavilion on the beach that will offer relief from the sun and heat. Lunch and a snack will be provided. If there are any special dietary needs, you will need to bring the special food for those individuals. Please bring your own extra snacks and drinks to make sure you stay hydrated during the day. Feel free to spend the entire weekend in beautiful Rockport, Texas, as many of our families do. If you plan to stay the weekend, be sure to start looking into places to stay now at http://www.rockport-fulton.org. For planning purposes, please RSVP by Friday, May 25 to the DSASTX office at 210-349-4372 or sanderson@dsastx.org.
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Meet Julian
Our miracle, Julian Michael, was born August 6, 2003. His oldest sister, Alex, chose the name. It means "youth who is like God." I could not have thought of a more fitting name, myself, and it suits every part of his character. Julian is our special gift from God. We were blessed to be able to immediately recognize that gift and embrace him with the deepest part of our hearts. He was born with a heart defect, though its severity was not immediately discovered. His respirations at rest were between 80 and 100 times per minute, and at 2 months of age after a catheterization immediate heart surgery was scheduled to repair a significant hole. As has been true for multiple other surgeries and procedures, he was our hero, emerging like a champion through very difficult circumstances. From a very young age, his character has been as stubborn as his will. With an amazing sense of humor, he can impress a grin on even the hardest of hearts. His mind is not easily retrieved when it goes galloping across the universe, fighting monsters, slaying dragons, or floating in a house lifted with balloons by becoming Carl Frederickson. His sister, Ginelise, is co-conspirator in his dreamy Julian Michael jaunts. Julian's greatest trait is his ability to love with a youthfulness that is not polluted by age or experience; it is timeless and enviable. Julian is in second grade at Carnahan Elementary School and is surrounded by an extraordinary staff. He loves his routine and, with the help of the staff, is able to successfully be in an inclusive environment the majority of his day. He is an all 'A' student whose favorite subjects are reading and science/social studies. We were extremely excited when friends, family, and people we have yet to meet nominated Julian as Prince of the Royal Court for Fiesta Especial. It is a wonderful organization, and we are proud Julian is one of its representatives. Though it is sometimes difficult for him to fully accept the numerous responsibilities of this new designation, Julian was such a proud young man as he traipsed across the stage on the night of the coronation. What a memorable occasion!
Board Highlight Lamont Jefferson By Noe de la Garza
A lawyer with a TEXAS-SIZED heart is the perfect description for Lamont Jefferson, a member of the Board of Directors for the Down Syndrome Association of South Texas. Lamont is a military brat and the third of six children. After living in several parts of the world, we are fortunate that he has Lamont Jefferson called San Antonio home for many years now. Lamont considers himself a huge fan of football, having played high school football at John Jay here in San Antonio and through his college years at Rice University. Jokingly, Lamont recalls his most memorable game – “My first game was in 1977 against UT - final score 72 to 15. We had the 15! The star running back for UT was Earl Campbell. If you look closely, you can still see his cleat marks on my neck. It was about that time that I decided to go to law school.” During our visit, Lamont also revealed that he is a halfway decent golfer, and he sings in a quartet. I guess we will have to hear those golden pipes flex pretty soon, maybe at the Christmas Party! Lamont is the father of two outstanding grown adults. His son is a Texas State University student who is a DJ and loves anything that involves music. His daughter is a 5th grade inner city school teacher in New York City, having also graduated from his Alma Mater, Rice University, and the Teachers College at Columbia in NY. Mr. Jefferson is currently a trial lawyer in business disputes of all types at Haynes and Boone, a Texas-based international law firm. He also plays a key role for the DSASTX when it comes to the legalities of many day-to-day issues. He is linked to Down syndrome through his 8-year-old nephew, and in Lamont’s words, “one of the coolest kids I know.” I agree, there is something about our kiddos that bring out the best in all of us. Lamont’s vision for the Association is to capture as much of the local Down syndrome community as possible in order to pool resources and influence the community. He believes that a good strategy would be to partner with other friends and organizations in order to increase knowledge and awareness of Down syndrome and to demystify and educate new parents that require our assistance. We are thrilled and appreciative to have Lamont on the Board of Directors!
Julian is very gifted with computers and technology. We hope that one day he can use these skills to develop a trade that will sustain his independence and help him to achieve his goals and dreams ... even go to college. It is exciting to think about his future; that his hopes and dreams will lead to a fulfilling life.
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Moving Forward ... By Leah Chapa
This year was an extraordinary experience for anyone who was able to attend the Affiliates in Action (AIA) Conference paired with the Buddy Walk on Washington. AIA and the National Down Syndrome Society did an outstanding job, of not only planning its success, but also making sure everything ran smoothly to maximize our effectiveness. Our deepest appreciation goes out to Terri Mauldin and the Board of Directors of the DSASTX for allowing the Government Affairs Committee, Rachelle Landry, and I, to attend and glean some very important information. Truly, the most enlightening experience was to see what all the Down syndrome associations from across the country are doing to promote positive change for people with Down syndrome. Our members of Congress are working hard for our families. Cathy McMorris Rodgers (R-WA), Pete Sessions (R-TX), Chris Van Hollen (D-MD), and Eleanor Holmes Norton (D-DC) have all made strides in helping us to have a voice in congress. We are blessed to be part of an amazing group of people who dedicate their time, money and lives in order to improve the experiences of our special family members. It was also exciting to be able to introduce our new name, Down Syndrome Association of South Texas, and our statewide group, Texas Down Syndrome Advocacy Coalition, to prominent legislators who will be hearing from us on a regular basis. BUDDY WALK ON WASHINGTON NDSS recognized four key areas that we introduced on our walk on Washington: 1. Achieving a Better Life Experience (ABLE) Act The ABLE Act will give individuals with disabilities and their families the ability to save for their child’s future just like many other American families do. This will help people with disabilities live full, productive lives in their communities without losing benefits provided through private insurances, the Medicaid program, the Supplemental Security Income program, the beneficiary’s employment, and other sources. Currently, the system does not allow individuals with disabilities to have more than $2,000 in assets without restricting their benefits. Many think of these assets as merely currency, but it also includes tangible possessions such as a house, car, bicycle, etc. If a person with Down syndrome wants extra funds for entertainment, college, hobbies, dental work, hearing aids, etc., where do those funds come from? Obviously, this system severely limits their livelihood. Under the ABLE Act, persons with disabilities can have assets totaling $100,000 or less. If their assets exceed that amount, federally funded programs will be suspended, though not indefinitely. If and/or when the assets fall below the $100,000, all programs are reinstated immediately. This bill has a great deal of traction and is supported by members of Congress in both parties.
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2. Elementary and Secondary Education Act (ESEA) Reauthorization ESEA, formerly the No Child Left Behind Act (NCLB), needs to be reauthorized by Congress. The proposed bills to revise (reauthorize) ESEA are expected to profoundly change the current ESEA requirements that created greater accountability on the part of schools and districts for all students by requiring academic performance assessments of students at regular intervals. In summary, the changes that are being suggested have the potential of severely limiting the accountability of schools, the fairness in testing students with intellectual disabilities, the access to grade level content, and the access to highly qualified teachers. Additionally, the alternate testing may preclude students from working toward a regular high school diploma. All of these issues have potentially very grave consequences for students with intellectually disabilities. We have requested that members of Congress vote against any ESEA bill that does not address these issues. 3. Down Syndrome Research The impact of research is significant no matter the age or stage of a person with Down syndrome. In September of 2011, an international pharmaceutical company announced the first clinical trial focused on a new drug to address cognition and adaptive behavior in individuals with Down syndrome. Researchers are also studying proteins related to human chromosome 21 and Alzheimer’s disease and treatments that would reduce the level of these proteins, leading to improvements in cognition for individuals with Down syndrome. This is especially important knowing that Alzheimer’s impacts ALL adults with Down syndrome. Another interesting fact is that people with Trisomy 21 are at significantly less risk than the general population for solid mass cancers. So, if researchers can isolate the cause, there is great potential for saving lives in the general population. Although we appreciate the National Institutes of Health and their efforts in promoting research in the field of Down syndrome, it is surprising to know that Down syndrome research is the least funded even though it is the most commonly occurring genetic condition. We have encouraged our legislators to use their influence in making research more equitable for our group of citizens.
www.dsastx.org 4. Congressional Down Syndrome Caucus The Congressional Down Syndrome Caucus was established in March 2010. The NDSS Policy Center works with members of the Congressional Down Syndrome Caucus in support of its mission to educate members of Congress and their staff about Down syndrome. The Caucus supports legislative activities that improve Down syndrome research, education and treatment and promote public policies that would enhance the quality of life for those with Down syndrome. We have encouraged each of our legislators to become a member of this caucus. AIA CONFERENCE There is something magical and energizing about being with hundreds of people who all believe in the abilities of people with Down syndrome. It was hard to keep the group quiet long enough to make announcements, but as we settled in, it was immediately apparent that this group was extremely educated on a diverse number of issues that uniquely affect our population. The breakout sessions covered a whole range of topics. Here are just a few highlights: Evidence-based Resources to Improve Speech and Language Did you know that DownsEd offers a speech and language program specifically developed for children with Down syndrome. It is scientifically based and has been developed through years of research. Post-Secondary Inclusion There are currently 260 programs around the country who offer post-secondary education to people with intellectual disabilities. The Higher Education Opportunity Act helps to make this possible by helping with funding sources, work study programs and other approved programs. Universal Design for Learning Universal Design for Learning (UDL) is a set of principles for curriculum development that give all individuals equal opportunities to learn. It provides a blueprint for creating instructional goals, methods, materials and assessments that work for everyone – not a single, one-size-fits-all solution but rather flexible approaches that can be customized and adjusted for individual needs (cast.org). It is a federal policy and was drafted into the Higher Education Act of 2008 and the LEARN Act (Literacy Education for All, Results for the Nation). Many more topics were covered and all of them impacting the lives of people with Down syndrome.
It’s time to start planning for the summer!
Emerson enjoying his lesson at Triple H Equitherapy
Dillon at Triple H
Triple H Equitherapy is one of many programs available for individuals with special needs. Visit the DSASTX website for a comprehensive list of summer programs. We would love to add to this list, so if you are aware of other programs, let us know about them!
What is D.A.D.S? Dads Appreciating Down Syndrome, or D.A.D.S., is a committee or community group (within a local Down syndrome support organization) of fathers of children who happen to have Down syndrome. We hesitate to call our self a "support group", even though we do, in many ways, support each other. The cornerstone of D.A.D.S. groups is the monthly meeting where members come together to share insights and experiences. The DSASTX D.A.D.S group meets bi-monthly on the 1st Thursday of the month. The location of the meeting might change so be on the lookout for mailings and emails with details for each event. We hope you get involved with this amazing group! Thursday, May 3 – DSASTX office upstairs • 7 p.m. Saturday, August 4 – Dad and me fishing with Texas Parks and Wildlife; more details to come Thursday, September 6 – DSASTX office upstairs • 7 p.m. Saturday, September 29 – Buddy Walk Thursday, November 1 – D.A.D.S. Outing TBD • 7 p.m.
Spring Picnic
Come spend a beautiful day with your DSASTX friends at our annual family picnic at Landa Park in New Braunfels! This year’s picnic will be held on Sunday, May 20th from 1-6 p.m. at pavilions #4, #5 and #6. Food will be served. Don’t forget your swimsuits, towels, water shoes, lawn chairs and sunscreen for water fun time in the Comal River. If you plan to attend, you must RSVP by Friday May 11th with the number of adults and children to sanderson@dsastx.org or 210-349-4372. Hope to see everyone there! Directions from the San Antonio area: Take IH 35 North towards Austin. Take Exit #187 and turn left at the light. You will be on Seguin Avenue. Follow Seguin Avenue to Main Plaza (traffic circle) in downtown New Braunfels. Go halfway around the traffic circle and exit (right) back onto Seguin Avenue by the Courthouse. Immediately get into the left lane. At the second traffic light, turn right on Landa Park Drive at the entrance to Landa Park. Pavilions #4, #5 and #6 are located past the train on the right side.
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Keeping Up With Downs
Contributions
We sincerely appreciate the following people who have so generously donated to the Down Syndrome Association. Your contributions help us offer a variety of programs for the members of our organization. Dr. John Abdo Pete Aceves Debbie Albright Christy Anderson Stephanie Anderson Vanessa Arispe Lydia Beach Dorothy Boone Cathy Marie Bordlemay Dama Budd In Memory Of Christian Galvan Coover Dianna Burns Bill Cade Kathy Carrizales Beverly Carson Marie Cassidy In Honor Of Stephanie Crane Aaron Castro In Memory Of Christian Galvan Coover Julie Chambers In Honor Of Caroline Chambers Gabriel Chapa Raul Chapa Aundrey Cherry Sherri Cherry Angela Clack Kimberley Cobbs Peggy Coker Kurt Collier Lloyd Collier James Collins Gary Conway In Memory Of Christian Galvan Coover Kathryn Cortez Sheryl Crites Angie Cronin Betyna DeAlmeida In Memory Of Christian Galvan Coover Linda Denness-Arvizu Ruth Diaz In Memory Of Christian Galvan Coover Barbara Dierker Lisa Drozdick Robert Ebner Zachary Edwards Guillermo Esparza Andy & Donna Fields Thomas Forest (Angie) F. Galindo Israel Garza Richard Glancey Tammy Harris Jeremy Hass Clifton Herber Deborah Hernandez Ben and Cindy Hernandez-Neito Maria Hey Laurie Hogan In Memory Of Christian Galvan Coover Cathy Holleman
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Yvonner Horne Clemons Angela Howorth In Memory Of Christian Galvan Coover David Hubbell In Honor Of Alex Navarro Valinda Huck Gloria Hymer Laura Iturriaga Debbie James Joyce Jefferson Lamont Jefferson Lissette Jenkins David and Donna Jones In Memory Of Christian Galvan Coover Jennifer Robin Kelley Margaret Kelley Alice Rose Kennedy David Kipp In Honor Of Billy Cade John Kraus Faye Kuo Suzan Ladd Greg Langas Judith Laufer Edward Leos Christine Littlefield Sarah Lopez Sergio Lopez In Memory Of Christian Galvan Coover Linda Lovell In Memory Of Christian Galvan Coover Bonnie Mair In Memory Of Christian Galvan Coover Melinda Maldonado In Memory Of Christian Galvan Coover Marshall Martell Ramiro Martinez Neal Matthews Terri Mauldin La Nelle McBee Luke McCarley In Memory Of Christian Galvan Coover Stephen McGinnis Chad McGuffin In Memory Of Christian Galvan Coover Tim McIntosh Frank Medrano Elizabeth Montalvo Sylvia Ovalle Michael Perez Michelle Pettit Sean Pevsner Brian Pierce Melissa Potucek Francine Prosser-Johnson Stephen Ramseur In Honor Of Riley Ramseur Staci Reaves Galloway Research Nancy Reyes In Memory Of Christian Galvan Coover Jessie Reynolds Hubbard Melanie Richard Ora Ruiz Stephen Ruston Javier Sandoval In Memory Of Christian Galvan Coover Barbara Schneider Eloise Sewell Myrtle Shaw Pat Shoemaker In Honor Of Joy Shoemaker Rachel Skelley Lisa Snow In Memory Of Christian Galvan Coover Kristin Stelmazewski
www.dsastx.org Stephanie Surber In Memory Of Christian Galvan Coover Tara Sutton Renee Thurston Moore Janice Troy Lisa Turner Richard Valle Bernice Vogel In Memory Of Janice Chamberlain Kim Walker Kurt Weber Kacey Wernli Edith Whitaker Mark Witt In Memory Of Christian Galvan Coover Julie Wittfield Eric Woytek Caliente Harley-Davidson Center for Maternal-Fetal Care Cheryl Lozano Citigroup (via Trust) Copenhagen Imports Double H Landscape Downtown Rotary Club of New Braunfels HEB Charitable Trust Jessica Whiteaker Kay LabCorp Lyle Family Living Trust Pearson SA Chapter of Jack and Jill SAFD Sequoia Cable Ranch Sequoia Cable Ranch Real Estate Traveler's via Cyber Grants, Inc United Health Group - Employee Giving Campaign
The Down Syndrome Association of South Texas is looking for Board of Director members with the following skill sets: Education, Finance and Medical. If anyone is interested in discussing joining our Board, they can contact Terri Mauldin at tmauldin@dsastx.org.
Who We Are mission statement The DSASTX's mission is to provide support and services to children and adults with Down syndrome and their families.
EXECUTIVE DIRECTOR Terri Mauldin 210-349-4375 • tmauldin@dsastx.org
community outreach coordinator Angie Cronin 210-349-4372 • acronin@dsastx.org
Special Events Coordinator Stephanie Anderson 210-349-4372 • sanderson@dsastx.org
DSA Bookkeeper Vicky Akers 210-349-4372 • vakers@dsastx.org
adult continuing education director Hilda Tovar 210-349-4372 • htovar@dsastx.org
BOARD OF DIRECTORS Chairperson – Christy Anderson Vice Chairperson – Edward Leos Secretary – Lisa Drozdick Treasurer/Finance – Debbie Albright Member at Large – Jessaca Bond Member at Large – Barbara Samfield Member at Large – Tim McIntosh Member at Large – Michelle Pettit Member at Large – Noe de la Garza Member at Large – Lamont Jefferson
The DSA is on Facebook!
THANK YOU! to Benson Design Associates, Inc. for the beautiful, new web design! If you haven't seen it, check out
Become our Friend at http://www.facebook.com/pages/ Down-Syndrome-Association-of-SouthTexas/145682488784297
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Calendar of Events
JULY 10 Playgroup Kindermusik: Music Arts Center Northwest, 12732 Cimarron Path, Ste. 100, 11 a.m. 10 Boerne PSG: Buddy Walk Kick Off! St. Peter the Apostle Catholic Church, 202 W. Kronkosky St., Boerne, Room #148 FLC, 6–8 p.m. 17 San Antonio Southside PSG: ARD Clinic #2, De Paul Family Center, 7607 Somerset Road, 6–7:30 p.m. 19 New Braunfels PSG: Buddy Walk Kick Off! Gruene UMC, 2629 E. Common St., 6–7:30 p.m. 28 DSASTX Family Swim Day at the ARC: Pam Stephens Center, 6530 Wurzbach Road, San Antonio, TX 78240, 10 a.m.–1 p.m.
May 1, 8 –Playgroup Kindermusik: Music Arts Center Northwest, 12732 Cimarron Path, Ste. 100, 11 a.m. 1 San Antonio Northside PSG: Special Needs Dentistry, Coker UMC, 231 E. North Loop Rd., Gibbs 1108, 6–8 p.m. 3 D.A.D.S.: Meeting at the DSASTX Office, 2800 NW Loop 410, 7 p.m. 8 Boerne PSG: Advocacy 101, St. Peter the Apostle Catholic Church, 202 W. Kronkosky St., Boerne, Room #148 FLC, 6–8 p.m. 15 San Antonio Southside PSG: PALS Training #3, De Paul Family Center, 7607 Somerset Road, 6–7:30 p.m. 17 New Braunfels PSG: ARD Training #1, Gruene UMC, 2629 E. Common St., 6–7:30 p.m. 20 DSASTX Annual Picnic: Landa Park, New Braunfels, TX, Pavilions #4, 5, 6; 1–6 p.m.
JUNE 23 Adult Matters & Teen Club: Bowling, Bandera Bowling Center, 6700 Huebner Rd., San Antonio 78238, 3–5 p.m.
april 21 DSASTX Family Day at Fiesta Especial: Rackspace, 5000 Walzem Rd., San Antonio, 10 a.m.
JUNE 5 San Antonio Northside PSG: Behavior Strategies, Coker UMC, 231 E. North Loop Rd., Gibbs 1108, 6–8 p.m. 9 Audrey's Day at the Beach: Rockport Beach Park, Rockport, TX, 8:30 a.m. 9 Kid Connection: Magik Theater, 420 South Alamo, 2 p.m. 12 Boerne PSG: Therapeutic Horseback Riding, St. Peter the Apostle Catholic Church, 202 W. Kronkosky St., Boerne, Room #148 FLC, 6–8 p.m. 15 Playgroup Kindermusik: Music Arts Center Northwest, 12732 Cimarron Path, Ste. 100, 11 a.m. 19 San Antonio Southside PSG: ARD Clinic #1, De Paul Family Center, 7607 Somerset Road, 6–7:30 p.m. 21 New Braunfels PSG: ARD Training #2, Gruene UMC, 2629 E. Common St., 6–7:30 p.m.
AUGUST 4 D.A.D.S.: Dad and me fishing with the Texas Parks and Wildlife 7 San Antonio Northside PSG: Buddy Walk Kick Off! Coker UMC, 231 E. North Loop Rd., Gibbs 1108, 6–8 p.m. 14 Boerne PSG: Therapeutic Yoga, St. Peter the Apostle Catholic Church, 202 W. Kronkosky St., Boerne, Room #148 FLC, 6–8 p.m. 16 New Braunfels PSG: Behavior Strategies, Gruene UMC, 2629 E. Common St., 6–7:30 p.m. 21 San Antonio Southside PSG: Buddy Walk Kick Off! De Paul Family Center, 7607 Somerset Road, 6–7:30 p.m. 25 DSASTX Family Day at Splashtown: 11 a.m., 3600 IH 35 North, San Antonio, TX 78219 SEPTEMBER 6 D.A.D.S.: Meeting at the DSASTX Office, 2800 NW Loop 410, 7 p.m. 29 Buddy Walk!
RETURN SERVICE REQUESTED Down Syndrome Association of South Texas 2800 NW Loop 410 San Antonio, TX 78230 Nonprofit Org U.S. Postage paid San Antonio, TX Permit No 1126