Down Syndrome Association of South Texas • 2800 NW Loop 410 • San Antonio, TX 78230 • 210-349-4372
Volume 15, Issue 1
JANUARY 2013
What’s
inside...
Executive Director................1 HUGS...................................1 Teen Club.............................2 Playgroup..............................2 Kid Connection....................2 Adult Matters!......................2 Support Groups...................3 Audrey's Day........................3 Meet Persayus.......................4 Outreach...............................4 Mosaic Conference...............4 Fiesta Especial......................5
www.dsastx.org
Downs Keeping Up With
Message from Terri Mauldin ... Welcome to 2013! I am really looking forward to all the wonderful things the Down Syndrome Association of South Texas has in store for the next year! As we close 2012, I need to reflect on what a great year it was for not only the DSASTX, but for the Down syndrome community, as well. The DSASTX added so many new families, and we are now serving over 900 families with almost 5,000 contacts in our database. More and more people in our community are finding out about the DSASTX, and we love that we can let everyone know the great things we can do and how wonderful our kids are. We have added a new Spanish support group meeting, which meets every other month. If you or someone you know wants information on the Spanish support group meetings, please contact us so we can make note in our database. All the events we held in 2012, from the monthly social activities to the Buddy Walk to the Holiday Party, were so well attended that we know we are making an impact. Over 4,500 people attended the Buddy Walk, and we raised over $163,000. The Holiday Party had over 800 people in attendance.
I would like to take this opportunity to thank some people for their hard work at the Holiday Party: • Rene, Carlos, and Roland for providing all the wonderful dancing music • Chris Reilly Photography for taking such awesome photos
Terri Mauldin
• Ron Milius for being a wonderful Santa Claus • Zachary Milius for being the incredible elf! • All the volunteers that helped with set up, registration, kitchen duty, and clean up. I also want to thank all the Board of Directors’ members for their dedication and hard work this past year in helping the DSASTX become an awesome organization. I look forward to enjoying 2013 with each and every one of you!
Birdies for Charity...............5 D.A.D.S.................................5 Education Opportunities.....6 Spring Soccer........................7 D.A.D.S. Golf Tourney.........8
The DSASTX H.U.G.S. Annual Giving program is an easy way to donate with a one-time, quarterly, bi-annual or monthly gift through automatic donations via a credit or debit card with amounts as low as $5. With every donation given through this program, you become eligible for the H.U.G.S. Recognition Club! The levels of the club are:
Who We Are.......................11
H- Helpers ($5 - $249): your name appears on the annual report U-Underwriters ($250 - $499): name on the annual report and a DSASTX gift G-Givers ($500 - $999): name on the annual report, a DSASTX gift and eligibility for a special drawing S-Sustainers ($1,000+): name on the annual report, a DSASTX gift, eligibility for a special drawing and a reserved table at the Annual Holiday Party
Calendar of Events.............12
Visit the DSASTX website – HUGS link to start your monthly giving today!
RLI Project...........................9 2013 Calendars...................10 Contributions.....................10
Keeping Up With Downs
Teen Club
The Teen Club is open to all teens with any disability between the ages of 13 and 17. The goal of the Teen Club is to foster friendships, stimulate socialization, and increase positive self esteem. Chaperones will be in attendance at each event. The cost of Teen Club events will be covered by the DSASTX for the teen and one special needs, age-appropriate friend. Please RSVP for each event to Kerin Croft at kcroft@dsastx.org or 210-349-4372. SATURDAY, MARCH 23 – DSASTX ZOO DAY San Antonio Zoo, 3903 N. St. Mary's Street, 78212. 9 a.m. SUNDAY, MAY 19 – DSASTX ANNUAL PICNIC Landa Park, New Braunfels, Texas, 78130. 1 - 5 p.m. SATURDAY, JUNE 22 – BOWLING University Bowl, 12332 IH-10 West, 78230. 1 - 3 p.m.
Playgroup
Adult Matters!
Adult Matters! is a social program specifically designed for adults with special needs ages 18 and older. The focus is on providing an environment to help them further develop their social skills, build friendships among other adults with special needs, and offer them safe and appropriate interactions within the community. In order to foster that environment, we encourage them to invite an age-appropriate peer (another adult with special needs) to participate with them. DSASTX will pay the participation fee for both of them. Please RSVP for each event to Kerin Croft at kcroft@dsastx.org or 210-349-4372. SATURDAY, MARCH 2 – SPRING FORMAL Sunset Station, 1174 E. Commerce St., 78205. 7 - 9 p.m. SUNDAY, MAY 19 – DSASTX ANNUAL PICNIC Landa Park, New Braunfels, Texas, 78130. 1 - 5 p.m. SATURDAY, JUNE 22 – BOWLING University Bowl, 12332 IH-10 West, 78230. 1 - 3 p.m.
Playgroup is a playtime for children ages 0-3. The DSASTX will pay for entry fees to these activities (if applicable) for the child with Down syndrome and their siblings. Please RSVP for each event to Kerin Croft at kcroft@dsastx.org or 210-349-4372. WEDNESDAYS, FEBRUARY 6, 13, 20, 27 & MARCH 6 KINDERMUSIK Sign & Sing Session A with Jenifer Covington, M.Ed., MT-BC. Music Arts Center Northwest (IH 10 & De Zavala), 12732 Cimarron Path, Ste. 100, 78249. 10 - 11 a.m. SATURDAY, MARCH 23 – DSASTX ZOO DAY San Antonio Zoo, 3903 N. St. Mary's Street, 78212. 9 a.m. SUNDAY, MAY 19 – DSASTX ANNUAL PICNIC Landa Park, New Braunfels, Texas, 78130. 1 - 5 p.m. SATURDAY, JUNE 15 – MORGAN'S WONDERLAND 5223 David Edward Drive, 78233. 9:30 a.m. - 2 p.m. Bring your picnic lunch!
Kid Connection
Kid Connection is our gathering designed for family social activities. We welcome all children with special needs and their families! Our events are specifically designed for ages 4 - 12. The DSASTX will pay the admission for the individual with Down syndrome and their siblings. Parents are responsible for their own admission. A discounted rate will be offered when possible. Please RSVP for each event to Kerin Croft at kcroft@dsastx.org or 210-349-4372. SATURDAY, MARCH 23 – DSASTX ZOO DAY San Antonio Zoo, 3903 N. St. Mary's Street, 78212. 9 a.m. SUNDAY, MAY 19 – DSASTX ANNUAL PICNIC Landa Park, New Braunfels, Texas, 78130. 1 - 5 p.m. SATURDAY, JUNE 15 – MORGAN'S WONDERLAND 5223 David Edward Drive, 78233. 9:30 a.m. - 2 p.m. Bring your picnic lunch!
2
DSA
www.dsastx.org SAN ANTONIO – NORTHSIDE PARENT SUPPORT GROUP Coker United Methodist Church 231 E. North Loop Rd. Gibbs Room 1108 San Antonio, TX 78216
NEW BRAUNFELS PARENT SUPPORT GROUP Gruene United Methodist Church 2629 East Common Street, New Braunfels, Texas 78130
Our Northside Parent Support Group meets the 1st Tuesday of each month from 6:00 p.m – 8:00 p.m. A light dinner is served. Childcare is available with a required RSVP to Coker UMC at 210-494-3455 x 245 at least 48 hours in advance. Please leave a detailed message when making a reservation. TUESDAY, FEBRUARY 5 Topic: HCS and ICG Residential Services for Individuals with Developmental Disabilities Presenter: Tracy Warner, Progressive Life TUESDAY, MARCH 5 P.A.L.S. Clinic by Dot O'Donnell * 1 of 3 Sessions * TUESDAY, APRIL 2 P.A.L.S. Clinic by Dot O'Donnell * 2 of 3 Sessions * TUESDAY, MAY 7 P.A.L.S. Clinic by Dot O'Donnell * 3 of 3 Sessions *
SAN ANTONIO – SOUTHSIDE PARENT SUPPORT GROUP De Paul Family Center 7607 Somerset Road San Antonio, TX 78211 Our Southside Parent Support Group meets the 3rd Tuesday of each month from 6:00 p.m. – 7:30 p.m. A light dinner is served. Childcare is available with a required RSVP to the DSASTX office at 210-349-4372. We look forward to seeing you there! TUESDAY, FEBRUARY 19 Topic: HCS and ICG Residential Services for Individuals with Developmental Disabilities Presenter: Tracy Warner, Progressive Life TUESDAY, MARCH 19 P.A.L.S. Clinic by Dot O'Donnell * 1 of 3 Sessions * TUESDAY, APRIL 16 P.A.L.S. Clinic by Dot O'Donnell * 2 of 3 Sessions * TUESDAY, MAY 21 P.A.L.S. Clinic by Dot O'Donnell * 3 of 3 Sessions *
Our New Braunfels Parent Support Group (serving Comal and Guadalupe counties) meets on the 3rd Thursday of each month from 6:00 p.m. – 7:30 p.m. A light dinner is served. Childcare is available with a required RSVP to the DSASTX office at 210-349-4372. We look forward to seeing you there! TUESDAY, FEBRUARY 21 Topic: Obstructive Sleep Apnea Speaker: Dr. Kelly Smith, MD, FAAP THURSDAY, MARCH 21 Speech, Feeding, and Vital Stim Therapies THURSDAY, APRIL 18 Potty Training THURSDAY, MAY 16 Summertime – Area activities and resources for individuals with special needs
BOERNE PARENT SUPPORT GROUP St. Peter the Apostle Catholic Church, Room 148 FLC 202 W. Kronkosky Street, Boerne, Texas 78006 Our Boerne Parent Support Group meets on the 2nd Tuesday of each month from 6:00 p.m. – 8:00 p.m. A light dinner is served. Childcare is available with a required RSVP to the DSASTX office at 210-349-4372. We look forward to seeing you there! TUESDAY, FEBRUARY 12 Topic: Obstructive Sleep Apnea Speaker: Dr. Kelly Smith, MD, FAAP TUESDAY, MARCH 19 (Note new date due to Spring Break) Camp CAMP – Summer Camp Programs for children with special needs by Michelle Elble TUESDAY, APRIL 9 Speech and Feeding Therapies TUESDAY, MAY 14 Occupational and Physical Therapies
Save the Date ! ! Saturday, June 8, 2013 Audrey's Day at the Beach Rockport, Texas DSA
3
Keeping Up With Downs
Meet Persayus
I am so excited and honored to introduce Persayus Adrianny Witherspoon to everyone. I still remember the very day that I was made aware that the baby girl I was having would have Down syndrome. I was 12 weeks pregnant and got the call with test results. Like many others, the phone fell from my hands and my heart hit the floor as the fear of the unknown gripped me. Little did I know she would be a miracle we needed in our lives for all time. Persayus was born July 28, 2011 to Persayus Adrianny me (Alexandria) and Matthew Witherspoon Witherspoon. The glow in her eyes and the pure innocence in her soul were felt from the very first moment we held her. Since that day of wonder, the love and need for her in our lives grew stronger every moment as we watched her battle and overcome 3 long months in the NICU due to feeding issues, off and on illness, and her congenital heart defect. She fought hard to come home where she belonged, only to have to go back after 2 months for her open heart surgery, once again showing us the miracle that she was destined to be. Today, Persayus is now 17 months old and, just like any other baby girl, loves to play, laugh, and show off. I wish the whole world could see her dance and play! She is a combination of smart, sassy, and sweet all wrapped up into one precious little person. Every goal she accomplishes and every milestone she meets makes us so very proud. Watching her steal the hearts of everyone who meets her with her beautifully amazing smile, her dressing up, and her big bows is the miracle we are so very blessed to have and experience every day. She continues to show us through her happiness, strength, and joy that nothing in life should ever be taken for granted. It wasn’t easy to make that first phone call and reach out for support and guidance from the Down Syndrome Association, but I did it. I truly believe that the open arms, the love, the family, and the friends we have gained in our lives from making one simple phone call has helped us get through what, in the beginning, was fear. We gained a whole new family that we can never live without. There are so many stories, people, and babies who have touched our lives and captured our hearts; in return, we are here to share Persayus’ story and to help, love, and support anyone who may need us. Whether that is through offering friendship, being a parent-to-parent mentor, or giving a simple hug, we are here to love and support those who need us. So, if you need a hug or a kiss, just find us, but be warned, Persayus’ kisses are licks, and her hugs are the best medicine! Welcome to our miracle – her name is Persayus, and she is our world.
4
DSA
Outreach
WE WOULD LIKE TO WELCOME OUR NEWEST FAMILIES TO THE DOWN SYNDROME ASSOCIATION FAMILY! If you know someone who has a child or family member with Down syndrome, please let them know about the DSASTX and the services we provide. We’d be happy to reach out to help in any way possible! Daniel and Magaly Diaz, parents of Audrey Paul and Jennifer Fernandez, parents of Benjamin Javier and Jovita Almanza, parents of Irlanda Donn and Robin Greiner, parents of Gary Felix and Maria Ellena DeLeon, parents of Daniel Irma Ortega, parent of Charlie Jose and Norma Hernandez, parents of Leonardo Vanessa Chagoy, guardian of Brianna Rodriguez David and Veronica Salinas, parents of David, Jr. Gracie Longoria, parent of McKayla Patricia Matthews, parent of Aiden L. Garza Irene Suarez, parent of Jacob Roy and Jeannette Harrison, parents of Nathan Jesse Rayford, parent of Gecole Young Laura Wolfe, parent of Mackenzie Cesar and Jennifer Lopez, parents of Natalie Randy and Clarissa Alvarez, parents of Benedict Stella Sanchez, parent of Frederick John and Jessica Hanzalik, parents of Natalie Carol Gutierrez, parent of Adam Rivera
www.dsastx.org
Fiesta Especial
2013 Fiesta Especial Royal Court Gabriela Martinez, age 10, will represent the Down Syndrome Association as Page on the 2013 Fiesta Especial® Royal Court. October 19, 2002 was the day that Gabriela made her grand entrance into the world. With her spirited personality, it was not long before this beautiful child struck a chord in the heartstrings of many. Gabriela, now 10 Gabriela Martinez years old, is truly a happy-go-lucky kid. Her love of music knows no limits and she takes great joy in dancing to all the latest and greatest hit songs. She loves the outdoors very much and enjoys such hobbies as bike riding, trampoline jumping and playing on her swing set. If you ask Gabriela about her friends, she’ll eagerly tell you about them, and she will be quick to tell you that her Grandpa is her best friend. You can usually find the two of them getting into some sort of trouble together. Gabriela is a unique and determined individual. With her happy, unwavering personality, she strives to be as independent as possible and is determined to leave her mark on the world.
D.A.D.S.
Dads Appreciating Down Syndrome, or D.A.D.S., is a committee or community group (within a local Down syndrome support organization) of fathers of children who happen to have Down syndrome. We hesitate to call ourself a “support group”, even though we do, in many ways, support each other. We invite expert speakers to discuss medical, educational, financial, social, and any other issues that affect our children’s lives. And of course, we share stories and experiences that are unique to fathers of children with Down syndrome. TUESDAY, MARCH 26 – SPECIAL NEEDS FINANCIAL PLANNING Sea Island at the Forum 8223 Agora Parkway, Live Oak, Texas 78233 7-10 p.m. Speaker: Paul Fernandez MONDAY, APRIL 1 – GOLF TOURNAMENT See page 8 for more details.
Birdies for Charity
The DSASTX is a participant in Birdies for Charity. Birdies for Charity is a fundraising program designed by Golf San Antonio to give participating organizations the opportunity to generate contributions through the Valero Texas Open. Birdies for Charity is a no-cost program that gives 100% of the funds raised back to the participating organization. Funds are generated by soliciting pledges from individuals and corporations. Birdies for Charity is like a walk-a-thon, but instead of donating per mile, participants make a pledge for every birdie made at the Valero Texas Open. The 2012 Valero Texas Open had 2,022 birdies made, so a pledge of $0.01 yielded a donation of $20.22. Last year, the DSASTX raised over $6,000 through Birdies for Charity! Donors also have the ability to make a one-time donation and flexibility to pay in advance or be billed after the tournament. Donations are accepted from anywhere around the world and are tax deductible. To support the Down Syndrome Association, please visit the Birdies for Charity Donation Page (http://valerotexasopen.org/charities/ birdies-for-charities/) where you can pledge as little as $0.01 per birdie. What a fun way to give back to the DSASTX!!
A very special Thank You to Mary Jane Hardy for the book sales and raising over $6,000 for the DSASTX!!!
DSA
5
Keeping Up With Downs
Educational Opportunities Positive Discipline - Toddlers to Tweens Community Learning Center, 8750 Tesoro Dr., Room 206 Tuesday, April 9, 6:30 - 8:30 p.m. FREE TAPPestry CONFERENCE 2013 February 23, 2013 8 a.m. - 4:15 p.m. ESC-20, 1314 Hines Ave., San Antonio, TX 78208 TAPPestry is an annual conference hosted in conjunction with several area school districts and parent organizations. TAPPestry is comprised of parents, teachers, administrators, and other professionals working with children with special needs. This year’s keynote speaker will be Kathy Morris. http://www.igivuwings.com/index.html For more information and registration, visit the ESC-20 website.
SPRING COMMUNITY EDUCATION CLASSES FOR PARENTS ADHD Revisited - Tips for Happy Home Working! Community Learning Center 8750 Tesoro Dr., Rm. 205 Wednesday, March 27, 6:30 - 8:30 p.m. FREE This class will discuss the implications of an ADHD diagnosis on the ability of the child to develop appropriate study skills. Special attention will be paid to working within the child's limits and helpful accommodations both at home and at school. Instructor Kathy Cunningham, RN, BSN and Masters in Public Health, is a psychiatric nurse at Clarity Child Guidance Center. Help! My Teenager is Driving Me Bananas! Community Learning Center, 8750 Tesoro Dr., Room 206 Tuesday, April 16, 6:30 - 8:30 p.m. FREE Have you often asked yourself, "What happened to the fun little boy or girl I raised?" And whatever happened to the joys of communicating? Hear the latest research-based information on parenting teens who face a myriad of challenges in our society today. You will learn how to use discipline as a positive teaching tool rather than punishment and how to remain calm, teach selfcontrol and have more enjoyable communication with your teen. Instructor Brian Thomas is the Common Sense Parenting Coordinator for Boys Town Texas.
6
DSA
Come hear common sense parenting techniques for the parent with a testy toddler to an almost teenager. Parents will learn to set reasonable expectations based on age, development and abilities; give nurturing, love and praise in a way that helps children thrive and leaves everyone feeling good; and to create a personal plan for staying calm that promotes healthy communication between parent and child. Taught by Brian Thomas, Common Sense Parenting Coordinator for Boys Town Texas. Establishing Guardianship 101 Community Learning Center, 8750 Tesoro Dr., Room 206 Wednesday, February 27, 6:30 - 8:30 p.m. FREE If you are faced with the difficult decision of establishing guardianship or conservatorship over a loved one, this class is a must. Monica Bonilla, Attorney at Law and Director of Catholic Charities Guardianship Services, will help you better understand the process of guardianship, offer alternatives, help determine who can be appointed, discuss the powers and duties of the guardian and the court costs and applications. Special Needs Trusts & Wills Community Learning Center, 8750 Tesoro Dr., Room 207 Thursday, March 21, 6:30 - 8:30 p.m. FREE The advantages of having special needs trusts and wills are so great that anyone with special needs children or incapacitated adults should obtain them as soon as possible in order to protect and ensure their loved one's financial future. Attorney Patricia F. Sitchler will explain what a special needs trust should say, what kind of assets can be used to fund the trust, and how it can protect your family member who has a disability. No Child Care Available for these sessions
TEXAS ADVANCED LEADERSHIP AND ADVOCACY CONFERENCE March 3-5, 2013 Embassy Suites Austin Central, 5901 North IH-35, Austin, TX 78723 This annual conference provides leadership and advocacy training to adults with disabilities, parents of children with disabilities, and professionals working in the disability field. Applications for TALAC and more information is online at http://talac.tamu.edu/. Please like the TALAC Facebook Page: TAMU TALAC.
www.dsastx.org THE BRIGHTON CENTER’S PALS PROGRAM PRESENTS THE NEW ARD CLINIC
THE ARC OF SAN ANTONIO PLANNING FOR THE FUTURE SERIES 2013
ARD Clinics are two-hour sessions that offer information to parents in a group setting. Learning about one specific topic, this will assist parents with any questions regarding a specific diagnosis or disability. Refreshments are provided. Registration is limited.
An educational series of free workshops designed to help parents and caregivers of children and young adults with developmental disabilities prepare for the future.
When: All classes will be held 9 - 11 a.m. Where: The Arc of San Antonio, West Avenue Location, 13430 West Avenue, 78216 RSVP: Dot O’Donnell, (210) 826-4492 ext.5405 Dates & Topics: Tuesday, February 12: RTI – Response to intervention, how it works for your child. Tuesday, March 19: Positive Behavior Intervention, implementing positive tools to change a negative behavior. Tuesday, April 9: Autism 11 Supplements, to assist schools and parents on developing programs for students with Autism. Tuesday, May 14: Is Your Child a Target for Bullying? Signs and symptoms to look for if your child is being bullied.
GUARDIANSHIP Saturday, March 9, 9 – 11 a.m. Presented by Julie Balovich and Monica Guerra, Texas Rio Grande Legal Aid The Arc of San Antonio, 6530 Wurzbach, San Antonio, TX 78240 A disability does not automatically mean that an individual needs a guardian. During this workshop, you will learn whether your child or other family member should have a guardian and how to obtain guardianship. You will also learn about alternatives to guardianship for higher functioning individuals. *A Session in Spanish will be offered simultaneously* SPECIAL NEEDS TRUST Saturday, April 13, 9 – 11 a.m. Presented by Anna Torres, Private Attorney, and Haley Greer, The Arc of Texas The Arc of San Antonio, 6530 Wurzbach, San Antonio, TX 78240 Participants will learn about special needs trusts including how beneficiaries can maintain money or property and avoid losing essential long term benefits. The Arc of Texas Master Pooled Trust will be discussed as an option. * Childcare option: Respite Care of San Antonio offers Family Day Out at the PSC on Saturdays 9 a.m. – 4 p.m. You MUST be registered with Respite to utilize this service. Contact Oralia Waldron at (210) 737-1212 ext. 15.
Saturday practices begin Saturday, February 2nd at 3 p.m. Tuesday practices begin on Tuesday, March 12th at 6 p.m. The first game will be on Saturday, February 23rd at 3 p.m. These games will replace the Saturday practice times. Location: McAllister Park Lower Bee Tree fields Registration Fee: $60 to be submitted at the first practice. Special Olympics Area and State games are in May! For more information, visit the website at www.specialteamssoccer.com or contact Terry & Jackie Thompson at jacthom17@yahoo.com or specialteamssoccer@sbcglobal.net.
DSA
7
Keeping Up With Downs
8
DSA
www.dsastx.org
Reading and Language Intervention (RLI) Project Continues to Make Progress! LLQ USA is a 501(c) 3 which was formed solely for improving the lives of children with Down syndrome. The name, LLQ USA, is an acronym for Living, Learning, eQuipping Children with Down syndrome for full inclusive lives. The mission of LLQ is to bring a reading and language teaching intervention (RLI) to the United States education system which was recently developed and evaluated in a large randomized controlled trial in the United Kingdom by researchers at Down Syndrome Education (DSE) and the University of York. This was a landmark study, and the research findings from the UK have recently been published in the Journal of Child Psychology and Psychiatry. The results of the study can be summarized as follows:
• After only 20 weeks, children with Down syndrome taught using the program had made substantially more progress than those receiving typical classroom Literacy instruction (which included 1:1 support)
• On average, the children using the program gained 4.5 words on a standardized reading measure in 20 weeks – more than twice as many as those not using the program (this measure is equal to a typically developing child’s progress)
• Although only 60% of children with Down syndrome were able to score on a standardized reading test at start of the study, 90% could score after receiving the intervention – 50% more children
• By the end of the study, 1 in 5 children with Down syndrome had achieved word reading skills as good as typically developing children
This study demonstrates that the reading skills of children with Down syndrome can be dramatically improved in a short period of time with more effective teaching techniques. The RLI pilot study to convert the work done in the UK to the USA education system is being conducted in San Antonio, Texas in a small random trial at 10 schools in the North East Independent School District (NEISD), Carnahan Elementary and New Braunfels Christian Academy campuses which began in August, 2012, and will be completed in July, 2013. Dr. Kelly Burgoyne, PhD, and Dr. Sue Buckley, PhD who co-managed the trial in the UK, will be collaborating on this pilot with Dr. Judith Moening, Director of Special Education at NEISD, and her team. This pilot study will be a landmark in the United States, as there is no known evidence-based reading intervention in place in the US education system that is geared specifically towards children with Down syndrome. The program is theoretically-motivated, and based on principles of best practice adapted for the learning profile of children with Down syndrome. It is designed for children with Down syndrome between the ages of 5 to 11.
The response from the teachers, staff and administrators during the training for the intervention was very well received. The district staff that participated in the training were asking questions if the teaching methods could be done with other disabilities as well. The basic fundamentals of literacy used in the intervention are the same used to teach any child to read. Dr. Sue Buckley was asked to lead a Region 13 training in the Austin ESC training center where an additional 30 schools have committed to roll out the intervention methods in their classrooms as well. These schools will not be published in the research trial. In whole, the RLI training was very well respected by the educators who attended. Region 13 and NEISD staff are collaborating on plans to roll out the evidence-based intervention to more of their campuses with a training effort being discussed by the end of the school year. Dr. Buckley and her team are discussing a “train the trainer program” to possibly being implemented at the end of the 2013 Academic school year as the RLI pilot is completed in San Antonio. Dr. Sue Buckley, while in the US in January met with Gene Lenz from the Texas Education Agency and members of his staff in Austin and discussed a possible introduction to all 20 region service centers in the state of Texas to introduce this evidence based reading strategy to the schools across Texas. This effort would be done in a teleconference structure streamed by meetings that occur with the regions once a month. Discussions to this roll out are currently being had by the administration and Dr. Buckley’s team. LLQ team members have met with Paul Watson and Vicki Mitchell from the Texas Special Education Continuing Advisory Committee for TEA (TSpECAC). This collaboration is in hopes to have the committee recommend the RLI program, bring some bi partisan support to the project establishing a bill to teach children to read using this evidence based strategy in all Texas Public schools, and secure possible funding to assist with the training support needed to the ESC regions across Texas. Dr. Buckley, LLQ staff, and NEISD officials met with Chief Justice Wallace Jefferson and a representative from Gov. Perry’s office on disabilities to discuss possible support venues for the literacy project during her two week visit to the US. Dr. Terry Allor, an education department head for Southern Methodist University was also collaborated with regarding a recent literacy research project with children with a wide range of intellectual disabilities. This study was conducted over a three year period in Dallas Texas and many of the same intervention methods were used. A collaboration effort was discussed with SMU and Dr. Buckley’s Team (DSE) to further advance these literacy interventions for special needs children thru the Texas education system. To keep updated on further training events and news around this very exciting literacy advance for children with Down syndrome visit the LLQ website at www.llqusa.com or like them on Facebook for updates as well.
9
Keeping Up With Downs
2013 DSASTX Calendars available for sale!
2013 DSASTX Calendar Order Form Quantity
______
2013 DSASTX Calendar(s) @ $10 each:
Shipping/Handling ($2 1st calendar; $1 ea. addtl.):
TOTAL
$ ______ $______
$ _______
Child with Down syndrome? _____ Yes _____ No If yes, name and birthdate of child with DS: Name:_________________________________________________ Birthdate:_______________________________________________ SHIP TO: Name:_________________________________________________ Address:_______________________________________________ City, State, Zip:__________________________________________ Phone:_________________________________________________ E-mail:________________________________________________ Please send your check or money order along with this form to:
Credit card orders can be placed online in our new DSASTX Store or by phone to the DSASTX office 210-349-4372 10
DSA
✁
Down Syndrome Association of South Texas 2800 NW Loop 410, San Antonio, TX 78230
Contributions
We sincerely appreciate the following people who have so generously donated to the Down Syndrome Association. Your contributions help us offer a variety of programs for the members of our organization. Alamo Group Alarm Automation of Texas, Inc. Alexandra Reininger Allison Keip Anderson Jenkins Signature Homes Ashley & Blake Jefferson Barbara Spinner Barbara Samfield in memory of Jennifer Whipple Bill Cade Center for Maternal-Fetal Care Christopher & Brenda Bailey David Kipp in honor of Billy Cade Debbie Albright Deerfield Animal Hospital Dennis Sams Dina Coover Dorothy Anderson in honor of Sol Penafiel Douglas Smiley Earl Stuckey Eric & Dawn Bergquist Erin Smith Frank Pedroza Frank Przyborowski Galloway Research Geneva King in memory of Durwood King Gerald and Carol Lohrey and Family in memory of Mary Goodwin Gina Martinez Gloria Dietz in memory of Peyton Guelker Green Plumbing Greg and Rachel Langas Harold Hevner Holly Haggard Photography Jesus Garcia Jim and Pat Carmichael in honor of Wes Albright Juan Chavez Kathy Carrizales Kaylan Brushwood in honor of Avery Lambert Keller Periodontics Ken & Tia Weidenfeller Kenneth Lingle Kyle Law Firm Laura Gruner Laura Thetford Lark & Dan Lee Lisa Drozdick Louis B Levy, JR. Lydia Beach Maria Hey Marie Cassidy in honor of Stephanie Crane Mary Bobo Mary Chambers in honor of Carolina Sophia
www.dsastx.org Mary Glass win honor of Lindsey Moharam Michelle Pettit Mike and Janice Troy Monica Bowman Moore Supply/The Bath & Kitchen Show Place Neal Matthews New Braunfels Pediatric Associates Nicholas G. Garza Nika & Steve Jacobs Noe de la Garza Oscar Ybarra Pedro Frechel Pearce Trust Quantro B Ranch-Boazman Family Raymond Chilton Richard Wyckoff Rick Villarreal Rider Family Care River City Community Church Rosalio Jalomo Ryan Bohac Sandra Wilson Scott Gilbert Scott Syamken Selph Arms Stacy Welch Stephen C. Bennet, D.D.S Stephen Ramseur Summit Home Medical Equipment Susan Caster Tera Thompson Terri Mauldin Texas Farm Products Company Texas Medbuild, LLC The Griesing Gang Tim and Lettie Clarke in honor of Dulce Amor Fernandez Tin Star Roofing Travis & Kara Bock Wagner’s, LLC William and Cherri Dayson Zachary Edwards
Who We Are MISSION STATEMENT The DSASTX's mission is to provide support and services to children and adults with Down syndrome and their families.
EXECUTIVE DIRECTOR Terri Mauldin 210-349-4375 • tmauldin@dsastx.org
COMMUNITY OUTREACH COORDINATOR Kelly Toepperwein 210-349-4375 • ktoepperwein@dsastx.org
SPECIAL EVENTS COORDINATOR Kerin Croft 210-349-4372 • kcroft@dsastx.org
DSA BOOKKEEPER Vicky Akers 210-349-4372 • vakers@dsastx.org
ADULT CONTINUING EDUCATION DIRECTOR Oralia Lara 210-349-4372 • olara@dsastx.org
BOARD OF DIRECTORS Chairperson – Christy Anderson Vice Chairperson – Edward Leos Secretary – Lisa Drozdick Treasurer/Finance – Eric Swellander Member at Large – Debbie Albright Member at Large – Jessaca Bond Member at Large – Barbara Samfield Member at Large – Tim McIntosh Member at Large – Michelle Pettit Member at Large – Noe de la Garza Member at Large – Lamont Jefferson
THE DSA IS ON FACEBOOK!
Become our Friend at http://www.facebook.com/pages/ Down-Syndrome-Association-of-SouthTexas/145682488784297
DSA
11
Calendar of Events FEBRUARY 5 San Antonio Northside PSG: HCS and ICG Residential Services for Individuals with Developmental Disabilities, Coker UMC, 231 E. North Loop Rd. Gibbs 1108, 6 - 8 p.m. 6,13,20,27 – Playgroup Kindermusik: Music Arts Center Northwest, 12732 Cimarron Path Ste. 100, 10 - 11 a.m. 12 Boerne PSG: Obsctructive Sleep Apnea, St. Peter the Apostle Catholic Church, 202 W. Kronkosky St., Boerne, Room #148 FLC, 6 - 8 p.m. 19 San Antonio Southside PSG: HCS and ICG Residential Services for Individuals with Developmental Disabilities, De Paul Family Center, 7607 Somerset Road, 6 - 7:30 p.m. 21 New Braunfels PSG: HCS and CLASS Medicaid Waiver Programs, Gruene UMC, 2629 E. Common St., 6 - 7:30 p.m. MARCH 6 Playgroup Kindermusik: Music Arts Center Northwest, 12732 Cimarron Path Ste. 100, 10 - 11 a.m. 2 Adult Matters: Spring Formal, Sunset Station, 1174 E. Commerce St., 78216. 7 - 9 p.m. 5 San Antonio Northside PSG: P.A.L.S. Clinic #1, Coker UMC, 231 E. North Loop Rd. Gibbs 1108, 6 - 8 p.m. 19 San Antonio Southside PSG: P.A.L.S. Clinic #1, De Paul Family Center, 7607 Somerset Road, 6 - 7:30 p.m. 19 Boerne PSG: Camp CAMP – Summer Camp Programs for Children with Special Needs, St. Peter the Apostle Catholic Church, 202 W. Kronkosky St., Boerne, Room #148 FLC, 6 - 8 p.m. 21 New Braunfels PSG: Speech, Feeding, and Vital Stim Therapies, Gruene UMC, 2629 E. Common St., 6 - 7:30 p.m. 23 Playgroup, Kid Connection, Teen Club: DSASTX Zoo Day, San Antonio Zoo, 3903 N. St. Mary’s Street, 78212. 9 a.m. 26 D.A.D.S.: Special Needs Financial Planning, Sea Island at the Forum, 8223 Agora Parkway, Live Oak, Texas 78233. 7 - 10 p.m.
APRIL 1 D.A.D.S. Golf Tournament: 901 Sonterra Blvd. 78258, 11:30 a.m. 2 San Antonio Northside PSG: P.A.L.S. Clinic #2, Coker UMC, 231 E. North Loop Rd. Gibbs 1108, 6-8 p.m. 9 Boerne PSG: Speech and Feeding Therapies, St. Peter the Apostle Catholic Church, 202 W. Kronkosky St., Boerne, Room #148 FLC, 6 - 8 p.m. 16 San Antonio Southside PSG: P.A.L.S. Clinic #2, De Paul Family Center, 7607 Somerset Road, 6 - 7:30 p.m. 18 New Braunfels PSG: Potty Training, Gruene UMC, 2629 E. Common St., 6 - 7:30 p.m. MAY 7 San Antonio Northside PSG: P.A.L.S. Clinic #3, Coker UMC, 231 E. North Loop Rd. Gibbs 1108, 6 - 8 p.m. 14 Boerne PSG: Occupational and Physical Therapies, St. Peter the Apostle Catholic Church, 202 W. Kronkosky St., Boerne, Room #148 FLC, 6 - 8 p.m. 16 New Braunfels PSG: Summertime – Area Activities and Resources for Individuals with Special Needs, Gruene UMC, 2629 E. Common St., 6 - 7:30 p.m. 19 DSASTX Annual Picnic, Landa Park, New Braunfels, TX 78130. 1 p.m. 21 San Antonio Southside PSG: P.A.L.S. Clinic #3, De Paul Family Center, 7607 Somerset Road, 6 - 7:30 p.m. JUNE 8 Audrey's Day at the Beach: Rockport Beach Park, Rockport, Texas 15 Kid Connection and Playgroup: Morgan's Wonderland, 5223 David Edward Drive, 78233, 9:30 a.m. - 2 p.m. 15 Adult Matters! and Teen Club: University Bowl, 12332 IH-10 West, 78230, 1-3 p.m.
RETURN SERVICE REQUESTED Down Syndrome Association of South Texas 2800 NW Loop 410 San Antonio, TX 78230 NONPROFIT ORG U.S. POSTAGE PAID SAN ANTONIO, TX PERMIT NO 1126