australia’s national disability magazine August 2020 | Volume 30 Issue 1 | linkonline.com.au $9.95AUD / $11.50NZ
C E L E B R AT I N G 4 0 Y E A R S I N P R I N T I N 2 0 2 0 In this issue: Link looks back over 40 years / NDIS updates / Travel & Leisure / Happenings & more
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Inside 04
From the Publisher
06
From the Editor
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12
22
Letter from NDIS Minister Stuart Robert
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Special music group makes its debut
12 – 13
Edwina Elliott shares her experience on being a primary carer
16-17
NDIS news
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40
22-28
Link revisits 40 years
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Olivia Karaolis puts inclusion into the education spotlight
32-39
Travel and Leisure
40-41
Accommodation
46- 49 Employment
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54-57
Happenings – things to see and do August 2020
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From the Publisher
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Like us on Facebook /linkdisabilitymagazine
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August 2020
nterpoint Events was launched by Simon Cooper in 2004 and delivered the final piece of a 360 degree marketing concept for The Intermedia Group one of the largest B2B publishing companies in Australia. Interpoint is a professional trade exhibition and conference organiser in markets such as community sports, pools and spas, commercial cleaning, assistive technologies and hotel management. It specialises in holding events for industry associations and charitable bodies and in 2005 partnered with the Assistive Technologies Suppliers Association (then IRSA) to organise their expo. At this time the expo was held only in Sydney once every 2-3 years but grew to include Melbourne, Brisbane, Perth and Canberra and in 2019 partnered with the newly formed New Zealand AT association to launch in Auckland. Interpoint has worked very closely with the disability sector and has twice organised the Access Consultants conference, a disability sports conference as well as the only Post-
Polio conference in Asia. In 2013, to keep the sector connected Interpoint launched the weekly Freedom2Live newsletter which has become a leading information source on new products for allied health professionals. The acquisition of Link magazine and newsletter reflects the changes in market conditions due to the roll out of the NDIS. Link enables Interpoint to reach ‘consumers’ through the magazine, digital and an extensive social media network. Backed by Intermedia’s publishing expertise and resources Interpoint is looking to build upon Link’s 40 year history and position as the leading publication for the disability sector. Interpoint has been awarded winner of the Best Australian Show by the Exhibition & Event Association of Australasia and many of the new ATSA shows have been finalists in best new show awards. Interpoint has organised events in Australia, New Zealand, Singapore and the US and also publishes Australia’s leading geo business magazine.
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FOCUS ON ABILITY
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Publisher
Simon Cooper
Editor
Kymberly Martin kymberly@intermedia.com.au
Advertising
Michelle Stevens mstevens@intermedia.com.au 0419 822 717
Design
Jim L Koh
Prepress
Tony Willson
Production Manager Jacqui Cooper
Subscribe
To subscribe visit www.intermedia.com.au P: 1800 651 422 or E: subscriptions@intermedia.com.au www.linkonline.com.au
From the Editor
Link is published six times a year by Interpoint Events Pty Ltd. ABN: 9810 451 2469 A : 41 Bridge Road, Glebe NSW 2037 P : +61 2 9660 2113 F : +61 2 9660 4419 Reprints from Link are permitted only with the permission of the publisher. In all cases, reprints must be acknowledged as follows: ‘Reprinted with permission from Link Magazine’, and must include the author’s byline. The opinions expressed in this publication are those of the authors and do not necessarily represent those of the publisher. The Intermedia Group takes its Corporate and Social Responsibilities seriously and is committed to reducing its impact on the environment. We continuously strive to improve our environmental performance and to initiate additional CSR based projects and activities. As part of our company policy we ensure that the products and services used in the manufacture of this magazine are sourced from environmentally responsible suppliers. This magazine has been printed on paper produced from sustainably sourced wood and pulp fibre and is accredited under PEFC chain of custody. PEFC certified wood and paper products come from environmentally appropriate, socially beneficial and economically viable management of forests. The wrapping used in the delivery process of this magazine is 100% biodegradable.
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ink Magazine is back and celebrating its 40th birthday. Welcome to the first issue with our new publisher, Interpoint Events. While social gatherings are few and far between - literally - there are webminars and events for all to participate. Information on other events can be found on our Happenings pages. Also in this issue Link looks back over 40 years that makes fascinating reading and if you wanted some good news in this Covid-19 world read how the disability sector has been life changing for so many. Link likes to hear about inspiring people so if you know of anyone with
a story to tell please contact me on my email. These are difficult times to navigate but keep safe and be sensible with the restrictions wherever they might be. As one Victorian said during an interview for this magazine: “Tell your readers to be proactive not reactive!” And this from NOVA CEO, Martin Wren: “Determination, resilience and can-do will see us through. Collective chins up!” I hope you like the drawing of the birthday cake, by my granddaughter Rosie, who has mild cerebral palsy. Kymberly Martin Editor kymberly@intermedia.com.au
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NDIS Minister Stuart Robert
Letter from the NDIS Minister Stuart Robert to Link Magazine
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020 has been a challenging year for all Australians though especially so for Australians with disability. As Minister for the NDIS I have been working closely with NDIS participants, their families, NDIS providers and the disability sector more broadly to ensure government is there for those who’ve needed it in the face of the virus. As you know, one of the key aims of the NDIS is inclusion. There is perhaps no greater symbol of how far we’ve come when it comes to disability than the now ubiquitous use of Auslan interpreters at the official coronavirus daily briefings by our national and state leaders. We have kept our focus on keeping Australians with disability safe and supported whether it’s been by making sure people with disability have had a seat at the table for pandemic decision making, ensuring NDIS participants have priority access to groceries in the face of panic
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buying, or through making sure NDIS participants have plan flexibility to ensure they get the supports they need. I’ve remained uncompromising when it comes to the interests of Australians with disability during this difficult time. We have introduced a range of measures to support participants and providers including plan extensions, online and phone interviews, and proactive outreach to high-risk participants. Throughout the pandemic, the NDIA has made contact with more than 70,000 participants to ensure they have essential support, and the feedback has been overwhelmingly positive. More recently we announced further measures to support participants in NSW and Victoria to purchase personal protective equipment for their own use with their NDIS funds. We also haven’t stopped the important work of rolling out the
NDIS and continue to see strong levels of growth even in the face of challenging events. As of July 1 this year, the NDIS is now available to all eligible Australians, no matter where they live. On that date, we celebrated the seventh anniversary of the scheme, along with some significant milestones. The NDIS is now supporting more than 400,000 Australians with disability, growing from 7,000 at its inception in 2013. More than 150,000 of those are receiving disability-related supports for the first time. The NDIS is making a significant difference to the lives of hundreds of thousands of Australians with disability, their families and carers – and ensuring they have access to the supports they need to live an independent life. It has been a privileged to help deliver it and ensure its sustainability for future generations.
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Clint celebrates Outstanding Service Awards
hen Clint Pearson first started working at Bunnings in 2008, he knew he had a lot to offer. Autism and an intellectual disability had been barriers to him finding work in the past. Yet, once he found a supportive employer in Bunnings Noarlunga, SA, Clint found purpose and a way to build his confidence and skills. Twelve years on, the loyal employee is still servicing people with a smile and recently received two silver awards for outstanding customer service. “Clint has been a great team member for many years and is always willing to help with car assistance for our customers,” Noarlunga operations manager, Taryn Chapman said. “He loves to come to work and the team has a great amount of respect for his attitude! When Clint is at work, he tries his hardest…he doesn’t like to disappoint!” It’s this strong reliability and willingness to help others that led Clint to receive these awards. In addition to working with a supportive team at Bunnings, MatchWorks has provided tailored ongoing assistance over the years that has helped Clint perform at his best. “I like it when Kylie Scholz (pictured) from MatchWorks comes because she helps me with training and talks about work and helping customers. She also helped me with a call bell that tells me when customers need help.” When asked about what he loves about his work, Clint said trolleys were his favourite part. “It keeps me busy.”
Believe today
Begin tomorrow
Every year, MatchWorks empowers thousands of Disability Employment Service (DES) job seekers to prepare for, find and keep a job. When you choose MatchWorks as your DES provider, we work together to achieve your goals and tailor support to your individual circumstances and abilities. Flexible service options available, via phone, video conference or online.
Change your tomorrow, today. 1300 13 23 63 matchworks.com.au
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Jane Walker & Coco Espie
Cerebral palsy girl’s dream album brings animals to life
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bility and inclusion have come together in a new children’s album, a remarkable collaboration between a young girl with cerebral palsy and a Sydney singer/songwriter. Children’s musical group, Coco and the Cockatoos with Jane Walker and 10-year old Coco Espie have produced ‘Wild Life’ – a first offering from their newly formed music group that reflects Coco’s dream to make music, despite her disability putting many hurdles in her path. Launched this month, Wild Life will have a live performance premiere at Sydney’s Taronga Zoo’s DreamNight, for sick and disadvantaged children, in December. Every track on the album explores animals real and imagined with insights delivered by Walker’s detailed approach to researching and writing songs, inspired by Coco’s ideas and passion. The album is an adventurous exploration of many animals from camels, emus, kangaroos and tigers to roosters, dolphins, dogs, crocodiles and
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unicorns. It features 10 songs interwoven with messages about the importance of animal welfare and conservation. One of the songs, ‘Rocky the Rooster’ whose morning crow reminds everyone to recycle, reuse and clean up their rubbish each day. Another, ‘The Outback Song’ features Uncle Brendan Japangardi Kerin from Central Australia, who plays traditional emu and kangaroo songs on the yidaki (didgeridoo). Two singles from the album feature videos for children, ‘Crystal the Unicorn’ and ‘Peppi – the Woof Woof song – about Coco’s own pet puppy. The album will appeal to children
up to eight years old who love music and the happiness it can bring, especially to those, like Coco, who have endured time in hospital and therapy. It has been produced to help children use their imagination to visualise the animals in the songs as details about each animal are written into the lyrics. The album is available now on Spotify and Apple Music and from the Taronga Zoo shop. As well as the CD, there are t-shirts and posters. Every sale supports three causes, Sydney Children’s Hospital Foundation, Taronga Conservation Society and Ocean Recovery Alliance.
GIVEAWAY Would you like to win prize pack containing the Wild Life album (with a link to a free digital download), two posters and stickers? Nominate you favourite animal and tells us why in 20 words or less. To enter go to: @TheCockatoos or via the website - www.facebook.com/thecockatoos or www.instagram.com/TheCockatoos/ linkonline.com.au
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Aussie adaptive clothing company partners with US fashion label
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daptive clothing company EveryHuman is launching a new range of inclusive fashion from global fashion icon, Tommy Hilfiger. EveryHuman founder Matthew Kerritt told Link the range targets children and adults up to 35 years wanting a casual lifestyle. “We have clothes for the older demographic and this new collection fits in nicely and is a stylish and smart way to cover the gap. It is a very cool space to be in.” He said the partnership gives people with disability more choice. “It aligns with what we want to achieve so people can express themselves and gives them the opportunity to be unique. Tommy Hilfiger is the most recognised name
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in the adaptive fashion space and the range has done well in the US where it was launched 18 months ago.” The collection delivers innovative modifications and carries the ‘EveryHuman x Tommy Hilfiger’ label. It includes clothing for seating with easy closures such as magnets replacing buttons, tops with wide neck openings and other items all designed to make life easier. Pricing for the range starts at $39. It will be the biggest product release for EveryHuman since it launched last December and is being supported by an extensive media campaign. The clothes are also being sold locally on the Tommy Hilfiger platform.
Ease of Dressing •
Clothing For The Seated Position
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Easy On-Off Shoes
www.everyhuman.com.au
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Link to...News
The Elliott Family - Edwina, James , Ruby, Isabel and Claudia
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Link to...News
What makes for a happy workplace? T he biopharmaceutical company AbbieVie took a top spot in the 2020 list for the ‘Best Place to Work. And one of the reasons for this can be found in the following story from employee Edwina Elliott. Elliott spoke to Link about her experience as a primary carer for her husband who has a disability. When her husband, James, suffered a major stroke in August 2017, her life was upended. He was fighting for life in intensive care and she had to quickly come to terms with the situation while caring for their three young daughters. AbbVie supported Elliott by immediately providing her with carer’s leave and unpaid leave for six months. When she wanted to return to work, AbbVie allowed her to do so from home and from the hospital. When James was discharged from hospital six months later, the family moved to Bowral in the NSW Southern Highlands to start a new life. With her husband’s mobility and independence significantly impacted, AbbVie helped to adapt Elliott’s role
so that she could work completely remotely and be his primary carer. She continues to work remotely today as communications manager. There has been an improvement in James’s condition and cognitively he is fine although his speech has been affected and he has lost mobility skills. “We continue with the whole gamut of multidisciplinary treatment including physio, OT and speech therapy. “He has a power wheelchair and a manual push wheelchair but because of his mobility using the power chair is almost impossible as he cannot access the controls and it is a work in progress. The manual wheelchair is helpful as he can push himself around but we try to walk as much as possible but that requires me to help him.” Living in a smaller community has its advantages as the tyranny of distance does not apply here. No long drives to appointments or finding a car space. The school has been very supportive for the girls whose lives were turned upside down and who are still adapting. For Elliott one of the biggest
challenges has been not to allow her mind to get ahead of the game and remembering to focus on the now. “Finding time to look after yourself is invaluable. For me it’s a delicate balance between home life and work life, but I would encourage others in my predicament to try and keep their brain active in whatever way they can. I encourage other workplaces to check in with their employees and find what’s important to them. I’m living proof that true workplace flexibility can drive engagement and loyalty.” She said COVID-19 has made her reassess the family’s daily schedule and put more focus into what matters most, rather than trying to do everything. Having to add home schooling of three children to my day-to-day role as a carer, mother and employee has been an interesting time.” Her husband has an NDIS plan but in the beginning it was overwhelming as it was necessary to upskill on the intricacies of how the plan worked and what was included. “But three years on and I seem to have a better handle of it.
Mobile Physiotherapy Services SERVICING AUSTRALIA WIDE We look at the details for every single person we care for. It’s the little things that make the biggest difference. Friendly, personal and convenient in home, community and residential care. •
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Zestcare nominates the top apps – to help boost independence
Zestcare has put together a list of the best apps of 2020 for Apple and Android users, designed to make everyday tasks just a little bit easier for people with disability. Thanks to advances in technology assisted living support is now more accessible. Most of the apps are free. Choiceworks – A visual learning tool for completing daily routines using your photos, videos and audio recordings. Ideal for breaking down multi-step tasks and routines. iOS – Cost $14.90. Rogervoice - enables people with hearing impairments to have real-time conversations on the phone, by converting speech to subtitles. iOS/ Android – Free. Wheelmap is for finding wheelchair accessible places. Similar to Wikipedia, anyone can contribute and mark public places around the world according to their wheelchair accessibility. iOS/Android – Free. iDo Chores teaches children with special needs how to conduct daily tasks and chores around the house from sweeping, making a bed and washing dishes. App is only available on iPads. iOS – Free.
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Be My Eyes connects visually impaired people to a network of sighted volunteers. iOS/Android – Free. Glide is the world’s first live video messaging app originally designed for mainstream hearing users it is now popular with the deaf community. It combines the convenience of texting with the expressiveness of video chat. iOS/Android – Free. Sunny is the 1800RESPECT’s app for women with disability who have experienced violence and abuse. iOS/Android – Free. BlindSquare is the world’s most widely used accessible GPS-app developed for the blind, deaf-blind and partially sighted. iOS - $62.99.
Avaz is designed to make speech therapy more effective for children with autism, Down syndrome or cerebral palsy, as well as improve their intent to communicate. iOS/Android - $14.99 a month.
Otsimo is an educational game developed for people with learning disorders, attention deficit, autism, Down syndrome, Aspergers and other special needs. It teaches core skills such as words, alphabet, numbers, emotions and more through assistive games. iOS/Android – Free.
MediSafe Pill Reminder is like a personal assistant who makes sure you take medications on time and keeps track of information in a personalised log. iOS/Android – Free.
GO TO: www.zestcare.net.au/top-apps-to-help-boostyour-independence/ Zest Personalised Care is a registered provider of NDIS disability support services.
August 2020
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Your partner in possibilities.
Registered NDIS service provider. At Zest we believe in partnerships, let’s bring together your goals and our desire to support you in achieving them. We provide: Direct supports Plan management Support coordination Sydney I Illawarra I Hunter I Newcastle I Melbourne
1300 153 637 zestcare.net.au
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Join us for the Virtual Disability Expo – September 4-5, 2020
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ecently the COVID-19 pandemic has changed the way we live, work, socialise and obtain information. Accessing information and services via online platforms such as Zoom, facetime, Facebook messenger, WhatsApp and Skype to name a few has fast become the new normal. While we can't wait to see you all again in person in 2021, this year Disability Expo are hosting a special virtual event on Friday 4th and Saturday 5th September, 2020. The Virtual Disability Expo is a fantastic opportunity to continue to connect and be informed, all from the comfort and safety of your home. The Virtual Disability Expo, will link people with a disability, their family and carers with product and service providers in Sydney, Nepean, Melbourne, Geelong, Brisbane and the Gold Coast. The Virtual Disability Expo will be live and interactive in an easy-to-use format, with exhibitors available for immediate connection through either
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live chat and/video chat over the two live days. The Expo will feature informative presentations hosted by industry experts. The Virtual Disability Expo will include a full program of speakers, workshops and entertainers as well as the exhibition hall. Former Disability Discrimination Commissioner, Graeme Innes AM is the ambassador for the Virtual Disability Expo and key note speakers Ben Felten, John Coutis and Dr Dinesh Palipana. The NDIS and the NDIS Quality and Safeguards Commission will also present at the Expo. There will be lots of interactive games, polls and prizes on offer, including national prizes of $500 $5000 (sponsored by AFFORD) and regional prizes of $250 each. All registrants receive a FREE online copy of the Travel without Limits September 2019 edition!! There will be a range of exhibitors including: - Government and advocacy organisation
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Aids and equipment providers Education, training and employment providers Transport and vehicles Health and medical products and services Allied health professionals Support services including in home care providers Plan Managers Support coordinators
Check out the Expo Guide on the Virtual Disability Expo website for an exhibitor list and stage schedule and you can also keep up to date with the latest by following the Expo Facebook page specific to your region:
• Sydney
• Nepean
• Melbourne • Geelong
• Brisbane
• Gold Coast
Best of all ENTRY is FREE to all, just register each person to ensure you receive your own personalised link to the Expo live site for fast and easy access on the day.
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Link to...NDIS
SA disability advocate Dr David Caudrey weighs in on how the sector has changed during the last four decades.
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here has been a complete revolution in the disability field over the past 40 years. Anyone looking at what we had in 1980 and what we have in 2020 would be amazed at the transformation. In 1980, people with disabilities lived in institutions, usually under the care of doctors and nurses in such places as Strathmont Centre, Regency Park Centre or Minda campus. There was no international Convention on the Rights of Persons with Disabilities, no Disability Discrimination Act, no attendant care and only the first stirrings of independent living initiatives. In 2020, we have a national insurance-based disability scheme, which is built on the principles of individual choice of service provider and control over how those services
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are provided. There is an expectation that people with disabilities will live fulfilling lives like other citizens, that mainstream services will be accessible, that they will make appropriate provision to include people with disabilities, and that a person has the same rights. But there is still a long way to go before people with disabilities are fully accepted as part of the diversity of human society and that a person with a disability can gain
access to all the things that people take for granted like a job, a decent home, good health, friendships and relationships. For the past 40 years, Link Magazine has been at the forefront of pushing the disability rights agenda and helping the community to understand and accept people with disabilities. May Link do well in the next 40 years and might we look back in 2060 on more meteoric advancement.�
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Link to...NDIS
Get Right on Board across human rights
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ommissions of Inquiry, including the Royal Commission on child abuse, banking, aged care and disability, have all highlighted that boards and senior management are responsible for what goes on in their organisation. As one inquiry found, the distinction between governance and management "does not justify directors not interesting themselves in operational matters when it is known that governance system are either not in place or are untested." Australia is a signatory to the UN Convention, and the Convention informs both the NDIS and the NDIS
Quality and Safeguarding framework. Understanding of the human rights perspective is fundamental to contemporary service delivery; understanding the Convention will help Boards and Executive Teams anticipate some of the Royal Commission’s likely recommendations about service design. As evidenced by previous Royal Commissions, it is too late once you have been called to give evidence. Organisations must be proactively implementing measures to demonstrate their commitment and that of their staff, to provide quality services
Right on Board Program H ow do you ensure that your Board and Executive Team are across human rights, quality and safeguarding issues? In partnership with Purpose at Work, National Disability Services (NDS) is offering a new program Right on Board: Governing for Human Rights, Quality and Safeguarding. This includes a desktop review of your key documents, training for your Board and Executive Team tailored to your organisation, and recommendations for enhancing your current approach. A CEO from an organisation
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recently stated that it was “an excellent mini-workshop” and “we now have a far clearer understanding of Board responsibilities and are keen to implement your very welcome recommendations.” Right on Board is based on a seven-step model to promote human rights, quality and safeguarding by a board and executive team. This model helps to highlight key things to be considered such as: • How Boards and Executive Teams can actively promote human rights, quality and
safeguarding • What KPIs/measures you might use about rights, quality and safeguarding • How to foster a reporting and learning culture • How to have positive conversations between Boards and Executive Teams about any issues of concern. NDS has negotiated a memberonly discount of 10 per cent for the Right on Board program. Contact NDS Learn and Develop on: 03 8341 4307.
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Link to...NDIS
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New resources for assistance animals
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he National Disability Insurance Agency (NDIA) has released several resources to give participants, providers and assessors clearer guidelines about assistance animals funding requests. The NDIA has updated the Operational Guideline to include information about Assistance Animals. The ‘Including Specific Types of Supports in Plans’ Operational Guideline now includes a section on assistance animals. This information will help explain what supporting evidence planners need when considering funding requests for assistance animals. There are also clear definitions and examples of assistance animals for participants,
providers and assessors. There is also a new Assistance Animals assessment template, which will improve the quality of requests from participants, assessors and providers. The changes were informed from a La Trobe University report called ‘Key terms for animals in disability assistance roles’, which is available on the NDIS website. Participants now have clear guidelines on evidence needed to support a request for an assistance animal. The new Operational Guideline and the supporting assessment template will improve the quality of requests from assessors and participants, and providers.
More online support for young carers
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oung carer organisation Little Dreamers, has launched the ‘Dreamers Hub’ designed to give virtual solutions support during COVID-19. This new interactive community comprises resources, forums, games and content to help improve mental health and increase social opportunities for young carers. The hub is said to be particularly helpful for those in remote and regional areas, unable to access face-to-face programs. It also provides educational support by experts to conduct video classes, live forums and contribute articles. Content includes money matters, study skills and career guidance. According to Little Dreamers CEO,
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Maddy Buchner many young carers are facing increased anxiety due to the threat of the virus coupled with increased social isolation and higher demand in their caring roles. “At this time more than ever, we are seeing the importance of virtual programs and remote solutions, ensuring our most vulnerable have access to the support they need without having to leave home,” she said. The Ecstra Foundation has partnered with Little Dreamers to deliver the Dreamers Hub financial literacy series for the next six months with a money matters module launched on August 12. For more information visit www.dreamershub.com.au
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ink Magazine is not alone in celebrating in 2020. Congratulation to Mrs Peggs’ that is slightly younger. In 1982 Pat Roberts was trying to find a clothesline in Adelaide which she could use inside to utilise household heating but could not find anything to accommodate large sheets. It was at that stage she realised the need for a portable clothesline which would hold king and queen sheets and be placed anywhere for effective drying. She drew up initial designs and tried to get prototypes into production but it was too costly. Eleven years later, in 1994, Mike Marley helped fine tune the design and after three prototypes
were built, Roberts settled on the one which has been on the market ever since. One of the first things Roberts had to do was to secure the design by way of a patent and registered design and then come up with a logo and trade mark. She decided on Mrs Pegg’s Handy Line and in 1995 the company Mrs Pegg’s Products was incorporated. Starting from a small home office in Adelaide Mrs Pegg’s has grown to sell Handy Lines in the United States, New Zealand and Australia. Some customers still use Handy Lines that were manufactured over 20 years ago, a testament to the design.
LOOKING FOR INDEPENDENCE FOR YOUR CLIENTS? FOR CLIENTS WITH MOBILITY ISSUES MRS PEGGS CLASSIC EASY 8 IS THE ANSWER
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Featured Line: Classic Easy 8 (L)151cm x (W)62 x (H)110
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Link to...History of Link Magazine
HAPPY 40 TH LINK!
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ink has had a long, colourful journey to becoming Oz’s leading national crossdisability magazine. Carla Caruso delved through its archives to help celebrate its 40 -year history.
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lot happened in the year 1980. Baby Azaria Chamberlain disappeared from an Uluru campsite, believed to have been taken by a dingo. Beatles singer John Lennon was shot and killed and the Pac-Man arcade game was released. It was also the year that Link began its life as an Adelaide-based broadsheet newspaper, extending to just four pages at the time. In its first edition on August 1, 1980, editor Jeff Heath greeted readers with the following message: “Welcome to Link. Its aim is summed up in its title. Link intends to bridge gaps, to join hands, to bring people – both those with a handicap (disability), their parents and the rest of the community – together through a better understanding of the problems caused by a disability. But first and foremost, Link is to be a forum for people with a disability and their advocates. It will be a means through which important topics can be aired, grievances expressed, points of view argued, and questions answered. In thus gaining a better understanding of the problems and needs involved, Link will be able to campaign for better services, provisions, and assistance. Link has come about through the determination of a group of parents,
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concerned at the lack of public awareness of the various disabilities. For example, people with a disability and those connected with them often suffer from a sense of isolation from the rest of the community and from other disability groups. Link aims to help dissolve those barriers. Another example: some parents, especially mothers, may initially feel angry, guilty, frustrated, or sad when a particular disability is diagnosed in a child. Link aims to show these parents that they are not alone, that other shared such feelings. Link will try to help by showing how some parents have come to terms with those feelings. Link will provide information about where to find services, as well as news and special features. It will try to be entertaining. Link is independent and not affiliated to any particular political party or viewpoint. It is concerned with rights, respects, and resources. Those with a disability and their parents have rights, like everyone else – rights of independence and freedom of choice, the right to self-respect and self-expression. Link is about people. So, whether you are someone with a disability, a parent, a helper or
a friend, or a general public person, now is your chance to link up with Link. While some of the language around disability has changed since that first letter – and Link’s audience has broadened – much of the sentiment has stayed the same. Heath, as well as being Link’s first editor, was a Paralympic archer, the founder of Adelaide’s Disability Information and Resource Centre, and a member of the Australian Democrats. From the age of seven, he used a wheelchair due to bone cancer. He and his wife, Yvonne Baillie, took over the ownership of Link from 1994. The pair’s daughter, Lucianne, now 41 and a mother of two, also helped out at trade shows and conferences. Baillie remembers: “Link was started by a group of parents, when there was no information anywhere for families [of children with disabilities]. They wanted Jeff to help get it off the ground.” “He thought it would just be a couple of issues! … Close to the beginning, the paper was then taken on by the Adelaide branch of Disabled Peoples’ International.” When the local DPI office shut, Heath and Baillie decided to run the magazine themselves, producing it
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Link to...History of Link Magazine
CONGRATULATIONS ON THE BIG 40 We spoke to past editors, cover stars and more about their favourite Link memories – and what the magazine means to them.
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I joined Link in 2000 and took over as editor in 2003 when the then editor and owner, Jeff Heath, unfortunately became too ill to continue in the role. My best memories from Link are the people. There was always an amazing team surrounding each edition. Jeff and Yvonne were an inspiration to work with. So much energy and passion for doing good. The world sorely needs more of this. Then when Inprint Design took over [now SA Group Enterprises’ Blend Creative], Lee-anne and the team there welcomed me so openly and completely. Such a fantastic community. I’m extremely proud to have been involved with Link. Forty years is an incredible achievement and a testament to the good it does.
” Kate Treloar (Editor 2003)
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from their own home. They owned and operated it until Heath died a decade later, aged 49, following another battle with cancer. Baillie recalls: “At the time, we didn’t want Link to end and I didn’t think I could keep it going myself because Jeff was the star of it. I didn’t see how I could cope. So, we got in touch with SA Group Enterprises and it was Lee-anne Sparkes who was the one who made me feel okay to hand it over.” On its 40th milestone, Baillie said: “Jeff would be very proud of the fact that it’s kept going. Nowhere else in the world has a cross-disability magazine gone that long … I suppose, in a way, it’s his legacy, although Link wasn’t his idea in the first place – he kept it going and gave it direction. Without Jeff, it would have sunk long ago, because no one had the passion for it or the vision of what it could be.” Link has always covered a diverse range of topics including news, issues, art, sport, medical breakthroughs, travel, health, advocacy, products, and people in the disability sector. We thought we’d look back at a few key areas over its past four decades.
Among my favourite memories was having sports star, philanthropist and author Dylan Alcott on the cover of the June 2019 edition. Dylan is an amazing ambassador for inclusion and mainstreaming disability, whether it’s taking on the American Open for omitting wheelchair tennis – a fight Dylan won – or calling out people t wrongfully parking in disability parking lco A spots on his social media. I love his n Dyla weekend radio show with Angus O’Loughlin, and earlier this year, the two launched a podcast called ListenABLE, aimed at breaking down stigma around disability. I really enjoyed interviewing Greens Senator Jordon Steele-John as Australia’s youngest ever Senator in early 2018. At the time, he talked about challenging preconceived ideas around disability and vowing to represent the interests of people with disability in Federal Parliament. He also spoke to me passionately about the importance of having a Royal Commission into Violence, Abuse and Neglect of People with Disability, and of course, today that is a reality. I also enjoyed interviewing Rachael Leahcar, Catia Malaquias, Kiruna Stamell, Matt Cowdrey and Katrina Webb, while a cover story with comedian Tim Ferguson by long-term contributor Anthea Skinner was one of my personal favourites. I laugh along every time I read it. For me, it was the stories of people with disability, which made Link such a pleasure to work on – people’s bravery in telling their personal stories, in the hope of helping others – while also being able to shine a spotlight on issues facing the disability sector and society more broadly.
” Kelly Stone (Editor 2017-2019)
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Link to...A Look Back at 40 years
DISABLITY RIGHTS
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he rights movement was very important, coming out of the International Year of Disabled Persons in 1981. People like Link editor Jeff Heath, Richard Llewellyn [the first disability adviser to the SA Premier], and Trevor Harrison [also on the SA disability taskforce] were instrumental in South Australia in leading these changes. Take for example restrictive practices, which is basically just locking up, tying up and drugging up people with disabilities to control their behaviour.
Once this was just ‘accepted practice’, but is only used now as a last resort, when behaviours are dangerous and only after it has been lawfully authorised. More recently, we’ve had the United Nations’ Convention on the Rights of Persons with Disabilities and there’s been an evolving focus on rights. So, the things that other people in the community enjoy should be there for people with disabilities to enjoy too, including education and not being subject to false imprisonment.
NDIS BEGINS IN 2013
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ink spoke to leading disability advocate Professor Richard Bruggemann. “Before the National Disability Insurance Scheme the service system went basically like this – the government funded organisations and organisations provide services and people applied to get some of those services. Usually, you would have a case manager, and you might be getting services from a couple of agencies. Each of them would require you to have a case manager, fill out forms etcetera, and the power was with the providers. The NDIS has turned all of that on its head. You have an assessment to see if you’re eligible for disability services, and if you are, you have a disability plan. At the end of that, you’re allocated, say, $87,500. And then you’ve got that money to go and buy the services from the organisations you want, theoretically putting the power in the hands of the individual. But, of course organisations are finding ways to get around that, and we’re still seeing a lot of power in their hands. I think it will change but it’s taking its time. With another colleague, in 2013, we researched what could go wrong
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with the NDIS. During that time, we met a young lawyer in a wheelchair, who previously had been getting some service from a number of providers. She found them intrusive. For example, if she had a drink, the staff would report her to the service managers which really cheesed her off. She told us: ‘I can’t wait to do my plan, get my money, set it up how I want, and get everybody the f*** out of my life.’ For her, the NDIS has worked really well. We also met a man with an intellectual disability in Launceston, Tasmania, and he said, ‘We get screwed around now; I think we’re just going to get screwed around in a bigger system.’ And he was right. The NDIS hasn’t worked terribly well for many people with intellectual disability, mainly because it was designed for people like that young lady in the wheelchair. The whole premise of it was, you have a disability that requires you to have some services and you go to NDIS. Even in that first step, it’s wrong because many people with intellectual disability, particularly people who’ve got an overlay of behaviour issues or mental illness, won’t go to the NDIS. They will be in other service
systems, and when they go there, they can’t articulate what it is that they want, because they’ve never had any experience in doing that. So, the NDIS has not worked as well for people with cognitive disabilities as for those with physical disabilities. Some people have said the NDIS is like a plane that’s taken off before it’s been finally built, and they’re building it as it’s flying. And there is an element of that. The biggest problem that I’ve seen, though, is that it’s based on market principle. If you’re not happy with your services, you take your money and go somewhere else because it’s like shopping at Woolworths or Coles. Our young lawyer would be able to do that, while the guy with a cognitive disability will find it more difficult. We need to remember ‘the market’ doesn’t even work well in other industries, requiring the establishment of an energy ombudsman and a telecommunications ombudsman. The Commonwealth has since established the NDIS Quality and Safeguards Commission, which is the regulator to make sure it’s working well. That’s only been going since 2018 and it’s still a work in progress.”
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Link to...A Look Back at 40 years
INCLUSION M
TASKFO H RC T I
It is important that we understand what contributed to the death of Ann Marie Smith. It is no use having inclusion plans if we cannot ensure the safety of a potentially vulnerable group. It is so important that the Minister [Human Services’ Michelle Lensink in SA] has established the taskforce to discover and fix the gaps that contributed to this tragic death.
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as citizens, participating in, and contributing to, the fabric of Australian life. To do that, the NDS envisages inclusive and accessible communities, protection of rights, economic security, personal support, (through the NDIS), community inclusion and participation, learning and developing skills, and health and wellbeing. In South Australia, this commitment has seen the passage of the Disability Inclusion Act, which requires all government departments, statutory bodies and local government bodies to develop plans to ensure the inclusion of people with disabilities.”
M ANN ARIE S
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nterestingly, some of the most important changes for people with disabilities are almost unknown by the public. We all know about the NDIS, but few know about the National Disability Strategy, (NDS) signed off by all Australian governments. This commits to a national approach to supporting people with disability to maximise their potential and participate as equal citizens in Australian society. If all we were to do was have a better system to provide services, which is what the NDIS is designed to do, it would leave people with disabilities being seen as ‘service recipients’. The NDS sees them
From the Link archives
WATCH YOUR LANGUAGE
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ver time, we’ve moved away from disability terms like ‘the retarded’ to ‘retarded people’, then to ‘people with disabilities’ and ‘people living with disability’. But the emphasis is now on the people. They’re first and foremost people,” Bruggemann said. When flicking through old Link editions, this is also evident in the renaming of organisations over the years, such as:
1 2 3
The Crippled Children’s Association of SA … now Novita
Spastic Centres of South Australia … to SCOSA Autistic Children’s Association … to Autism SA.
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INAUGURAL STREET MARCH
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n its February 1981 edition, Link reported on the nation’s first street march for people with disability. March organiser Genni Batterham said then: “It was time to show the community that we are part of, not apart from, society. We have been on the receiving end for so long … together we have marched for a united tomorrow.
FIRST DISCRIMINATION CASE
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n its February 1984 edition, Link stated that Dennis Garton had won SA’s first discrimination case for people with disability. Garton was found to have been discriminated against for being blind when he applied for a switchboard coordinator position at Hillcrest Hospital.
ACCESS ALL AREAS
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n Link’s March 1986 edition, Richard Llewellyn, the SA Premier’s first disability advisor, wrote about a committee being formed to address subsidised transport. He added the postscript: “The committee has tentatively selected the name ‘Access Cabs’ for the vehicles being purchased for your transportation. Please write and tell me what you think.” The name continues today. In the next month’s issue, Llewellyn wrote about new curb ramps being installed around Adelaide as Australian Standards were being reviewed. In its July 1986 edition, Link reported that the ABC had agreed to have more of its children’s programs captioned for the deaf and hearing impaired, including Play School. Slowly, things were becoming more accessible to people with disability.
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Link to...A Look Back at 40 years
Gil
lia n Hi cks
CONGRATULATIONS ON THE BIG 40
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As editor of Link, I got to interview many interesting people and write about some amazing programs and initiatives, designed to improve the lives of people with disability. It’s hard to single out one or two stories as my favourites. However, the interview with London bomb survivor Gillian Hicks certainly stands out as a highlight. The way that Gillian describes the aftermath of that tragic incident is captivating, and it’s amazing how she has channelled her energy into becoming a leading voice on tolerance and understanding. Link is much more than a magazine about disability. It plays an important role in challenging stereotypes of people with disability, of representing people with disability in a contemporary and positive way and promoting the amazing work that is being done in the disability sector. Link also covers stories and issues that mainstream media overlook and provides a voice for people with disability, their families and carers, and those working in the industry.
” Rebecca Somerfield (Editor 2015-2017)
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Happy 40th birthday, Link Disability Magazine – a fine milestone to reach. Thank you for featuring opinions and perspectives directly from people with a disability. Thank you for caring and celebrating diversity and difference. The world needs more organisations like you.
”
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Katrina Webb OAM (Paralympic gold medallist, founder and director of Newday Leadership)
Looking Back at the Disability Sector – 40 Years On
By Carla Carus o
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rofessor Richard Bruggemann spoke about the biggest changes the sector has seen over the past 40 years. Bruggemann is a member of the SA Government’s 2020 disability taskforce, which was triggered by the death of neglect victim Ann Marie Smith who had cerebral palsy. The taskforce examined gaps in oversight and safeguarding of people living with profound disability. Bruggemann is also a former CEO of the SA Council on Intellectual Disability. Here, he looks back at how the sector has morphed and grown, and what still needs improving.
FROM INSTITUTIONS TO THE COMMUNITY “Essentially, the journey we have been on has been moving from viewing people with disabilities as ‘problems to be solved’ to citizens and participating members of our society. So, if we went back to the 1960s, we would have found people with more profound intellectual disabilities living in the back wards of Glenside and Hillcrest hospitals. In 1971, these people transferred to Strathmont Centre, which, along with Colanda in Victoria, was one of the last institutions of its type built in the world. Although a huge improvement on Glenside and Hillcrest, it was basically yesterday’s model of service the day it was opened. Until the 1970s, families [of children with disabilities] largely had
two options – put your child in an institution or take total responsibility yourself. There wasn’t a great deal of support for families. The 1970s and ‘80s saw some major changes. In South Australia, two major reports, The Law and People with Disabilities, led by Sir Charles Bright, and the Intellectually Retarded Persons Project, led by Dr Bill McCoy, paved the way for the creation of the Intellectual Disability Services Council with an emphasis on communitybased services. Probably the most significant change was the 1986 Disability Services Act. This saw the Commonwealth, which had previously funded sheltered workshops, becoming involved in all disability services, including accommodation, respite, family support, and recreation services. At the same time, a movement that started in America called ‘normalisation’, or social role valorisation, started to influence service delivery. Its thesis was that, if you’re someone in the community who is at risk of being ‘devalued’ because you have a disability, you are likely to get less of the good things that community has to offer, and more of the bad things that communities have to offer, like abuse
The NDIS is like a plane that’s taken off before it’s been finally built.
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Link to...A Look Back at 40 years
The 1970s and ‘80s saw some major changes. Probably the most significant change was the 1986 Disability Services Act.
and neglect. And, therefore, one of the things that we should be trying to do is make sure that people are not doubly disadvantaged through being devalued. These changes saw a move towards deinstitutionalisation, moving away from large institutions like Strathmont Centre, which housed about 600 people. This saw people move out of Strathmont into group homes with two or three other people. That worked, generally, really well for most people but it didn’t work quite as well for others. For example, there were people who left Strathmont, who were in local communities and felt isolated, unsupported and unloved and kept going back to see their old friends. What we didn’t see clearly enough then was the important friendship patterns that people had, even in institutions. So that was one of the things that I think we got wrong in the early days of deinstitutionalisation. This was rectified later by putting the individual at the focus of what we did. Instead of thinking about, ‘Okay, we want to close this villa at Strathmont. All right, you four people, you’re going to go to this house and live there.’ Later on, it went something like, ‘Bill, what do you want to do and what are your interests in life?’ and trying to find people who would fit together and form friendships. It was quite a different approach to the original idea of deinstitutionalisation.”
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Link to...History of Link Magazine
Kelly Vincent
FAMOUS FACES L
ink has featured many celebrities on its covers and inside its pages. In February 1985, Richard Llewellyn, the first disability advisor to the SA Premier, signed on as a regular Link columnist. In its May 1987 edition, Link also ran a front-page story when the then state premier John Bannon became a subscriber. In April 2008, former Opposition Leader Bill Shorten appeared on Link’s cover – back when he was the new federal Parliamentary Secretary of Disabilities and Children’s Services. At the time, Shorten told the magazine: “Very articulate advocates in the industry have helped me understand that it is not much good saying to people with disabilities ‘you can participate’ when you can’t go into a shop, catch a bus, airlines treat those with disabilities as nuisances not passengers, and buildings are inaccessible.” A decade ago, Kelly Vincent was the cover star of Link’s June 2010 issue. She was described as “the first person in a wheelchair to be elected to the South Australian Parliament, and at 21, the youngest woman ever to
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be elected to parliament nationally”. Vincent told Link: “I’ve just always had an eye for the bigger picture and making the world a better place for all people.”
Link has featured many celebrities.
Vincent went on to become a Link columnist. She’s now a co-chair of the SA disability taskforce, set up by the state government after the death of neglect victim Ann Marie Smith. Comic Steady Eddy, who has cerebral palsy, gave some star power to Link’s August/October 1992 edition. In his interview, Eddy told Link: “Most of [my material] comes from what people say to me, their reactions, and the fallacies some people have about disabled people. I just turn it around a bit.”
Grace Bowman, Katrina Webb, Felicity Johnson and Emmah Money
The late Christopher Reeve featured on the cover of Link’s December 2004 issue. The obituary read: “The death of ‘Superman’ Christopher Reeve – Hollywood actor, stem cell research advocate and dedicated family man – ends the life of the world’s most famous and controversial superhero.” Reeve had paraplegia after a horse-riding accident. A glam fashion shoot saw four well-known women with disabilities star on the cover of Link’s August 2011 edition. Paralympians Grace Bowman, Katrina Webb and Felicity Johnson, along with cystic fibrosis ambassador Emmah Money, modelled Alexis George gowns. A photo from the spread also featured in The Advertiser newspaper, with Bowman saying: “The shoot was fantastic fun. I got to wear a $3000 dress, which is a bit different to what I usually wear. It’s really important that we can have a disability but still be beautiful.” The spread went on to be recognised at the annual Catholic Archbishop of Adelaide’s media citations.
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Ali Stroker
LET’S TALK ABOUT SEX
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ink hasn’t ever been prudish about sex as a topic. In its February 1986 edition, the magazine included a news article on a group of readers from the vision impaired community, who filed a lawsuit in the US District Court. The group was seeking to overturn a congressional ban on publishing a braille edition of Playboy Magazine at the government’s expense. Playboy was one of 36 magazines, distributed in braille, under its national library service for the blind. In June 1986, an anonymous letterwriter wrote into Link, responding to a previous article, Sex and Spinal Injury. The letter-writer revealed: “It is not just the spinal injured who have sexual problems because of their disability. I am 25, male and have cerebral palsy, which has meant I have never had a
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sexual relationship. The frustration this causes is enormous and I have even considered going to a prostitute because it seems to me that it’s my only option. “I haven’t done this yet because it would hurt my family and my pride. But what else can I do? I have reached a dead end. Perhaps you could look at this situation, and people the same as me, and show how they have overcome this problem.” More letters on the topic flooded in, with Link pointing readers to the newly formed Sexuality and Disability Association of SA for further help. For its April 2016 issue, Link’s cover model was US actor and singer Ali Stroker, who’s appeared in the TV show, Glee. Ali recreated a sexy albeit controversial shoot, starring Kylie Jenner, of Kardashian fame,
in a wheelchair looking like a doll. Ali’s accessories for the cover shot included a black leather bikini and choker – and her real-life wheelchair. Stroker said: “It felt exciting to create these images that, in some way, already exist. But to see them created with someone actually living with the experience of being in a wheelchair, it feels powerful … People with disabilities are frequently infantilised by those around them, their sexualities seen as non-existent. Many feel that they are excluded from spaces where sex or romance is on the agenda, such as bars or Tinder ... [The shoot] feels like I’m able to say something; that we’re looking people straight in the eye.” Here’s to Link pushing the envelope – and covering the big stories, and the fun – into the future!
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Link to...News
Inclusion Matters T he first in a series of article on inclusion by Olivia Karaolis For many of us social isolation is a relatively new phenomenon, brought about by a global health crisis. As a nation, we collectively experienced the barriers to aspects of our lives that we had taken for granted, going to work, to school and to parties or the homes of our friends. We also experienced the loneliness when our social worlds retract. We did this with an awareness that the situation was temporary and with the hope that soon we would engage with our work, learning and others once again. I am reminded of the reality that for some people, especially those who experience disability, social exclusion remains. A recent study by Inclusive Australia (2019) found that overall Australians who experience disability have contact with other Australians that do not experience disability only a few times a year. This finding is consistent with other research (Australian Bureau of Statistics, 2016) showing that one in three individuals who experience disability avoid social situations with family and in public places because of their disability.
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As a mother and a teacher, I want a community that embraces all and one in which everyone feels socially included. I believe education has a powerful role to play towards building an inclusive community. Research shows (Cologon, 2019) that inclusive education benefits all children academically and socially and creates a healthy environment that nurtures a sense of belonging for all. It is here that the definition of what inclusive education is important. It is not about a place, something that should be ‘earned’ or available for ‘some’ students. Nor is inclusion in education, integration, when some children are permitted to be part of learning with other children for some of the school day, for example in music or library. I am talking about schools as learning communities that meet the needs of all children. It is about creative ways of teaching that recognise the fact that every child is different with many strengths and interests. Inclusion means having teachers that are prepared to meet the needs of diverse learners and willing to support the success of every child. They have high
expectations for every student and consider themselves responsible for the learning of everyone in their classroom. They model inclusive practice in all they say and everything they do. They support relationships between all children. I will never forget the words of one parent when she told me her daughter had never been invited to a birthday party. She was twenty-two years old. As a teacher, I have observed the greatest barriers to inclusion are the actions and words of adults. It is time for us to examine our fears about inclusion and be willing to commit to being part of schools that reflect the community we want for the future. A society that values all, respects and embraces all. I want that school for my children, and I want that school for your children too. At this party, everyone is invited. Inclusion starts with you and me. Welcome to the journey. Olivia Karaolis MA (Special Education/Early Intervention) teaches at the University of Sydney Faculty of Education and Social Work. She was associate professor, Faculty of Early Childhood Education, Santa Monica College, California.
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Link to...Leisure and Travel
James serving dinner at Anglesea
New respite program from Leisure Options gathers momentum
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eisure Options has pivoted their travel business and now offering support to people with disabilities through their recently introduced Respite program. The specialists in supported travel believe the current restrictions mean much more than simply being unable to take a holiday and many people have had their daily routines disrupted as standard supports temporarily close. As a registered NDIS service provider Leisure Options looked at ways to diversify their business so it could continue to assist those in need. A Respite program was conceived in March 2020 and has progressively grown to become
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an important offering to support individuals with disabilities and their families. With access to purpose-built accommodation in Anglesea, Leisure Options is offering a variety of Respite options with flexible, individually customised packages. Respite stays can be as active or relaxing as required, short or long term, while always adhering to current government mandated guidelines. The program offers a multitude of benefits to people with disabilities as well as family members and support staff and can be an alternative to employment or day programs that are currently unavailable. Leisure Options can also offer
emergency accommodation if urgent relocation is required. Due to the additional health considerations the company has updated and implemented suitable protocols that focus on health and wellbeing. The business adheres to all government recommendations and upskilled their team with additional COVID-19 training. The accommodation and vehicles are used exclusively for the Respite program enabling full control of cleaning and sanitation procedures and the dedicated support team works exclusively for Leisure Options rather than working at multiple locations within the community.
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Interior of Anglesea
Stephen serving lunch at Anglesea
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Become a day tripper with an Auslan interpreter
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uslan interpreters have been popping up all over the media during COVID-19 and now Cocky Guides, a leading tour operator for blind and low vision travellers, has launched small group adventures with onboard Auslan interpreters for deaf travellers. The operator ran the first trip with six deaf travellers to the NSW Shoalhaven region in July. “It allowed us to fine-tune the teamwork between our local trip leader and our Auslan interpreter,” Cocky Tours founder James (Buck) McFarlane said. Travellers are now able to take day tours by train with an Auslan interpreter from Sydney to popular regions with the first trip scheduled for the NSW South Coast on September 6 that includes a visit to a chocolatier in Berry and a wine tasting in Kangaroo Valley. September 19 takes in the Southern Highlands and more vineyards and on September 26 there is a scenic road trip to the Blue Mountains. McFarlane has organised the day trips so people can still connect under COVID-19 conditions. “But once border restrictions ease we will resume destinations across Australia,” he told Link. “Our specialty has always been with trips to places such as Port Douglas, Cairns, Magnetic Island, Byron Bay and cities including Sydney and Adelaide.” To maintain social distancing onboard vehicles, tour capacity is limited to no more than 50 per cent of available seating. Private charters
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for family or friends groups are also available. McFarlane launched Sensory Tourism Australia for travelers with specific needs two years ago. “In the past 18 months over 300 people have travelled with us and many are repeat guests.” “We have been delivering engaging sensory experiences on tour for blind and low vision travellers, and as the word spread I received requests
to tailor experiences for people with different needs. “There are already options available for disability travel however our success has been to focus on accessible, inclusive tours that offer great value. It was a natural progression for us to support travellers requiring an Auslan interpreter. “ For more information visit: www.sensorytourismaustralia.com/ tours.
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Tips for small business
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hen serving steak and chips, let the restaurant know beforehand that chips on the side create a better and easier experience for a person with low vision.
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hanging light bulbs to a higher wattage or providing extra lighting may make a significant difference. Leaving corridor lights on in hotels are another useful tip.
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rint price lists, service information and menus in a folder with large print format. Many people with low vision are able to read documents printed in 18 point type in a sans serif font such as Arial. Promote this service on standard documents or with a sign advising a large print version is available. Go one step further and transcribe frequently used documents into Braille.
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id you know that many people living with sight loss use screen readers? This technology reads out loud the content that is on the computer screen. This includes images, so make sure you are creating a description of images for use in all tags on your web pages. It can be extremely frustrating for people with visual impairments navigating your site without them. Also make sure screen readers are pronouncing your social media hashtags clearly and correctly. Use capitalised letters for each new word, for example: #AccessAndInclusion instead of #accessandinclusion. This will also make your hashtags easier to read for all users.
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Link to...Leisure and Travel
Time to catch up with some Aussie birds – the feathered variety!
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f you have some leisure time and like Australian wildlife then this event could be of interest. The Aussie Backyard Bird Count is the largest citizen science event in the country and is part of National Bird Week that happens from October 19-25, 2020. To get involved all you need is 20 minutes, a favourite outdoor area, some keen eyesight and the Aussie Bird Count app or website. National Bird Week has run for more than 100 years and is one of Australia’s longest running community conservation events. It is organised by BirdLife
Australia the nation’s largest bird conservation group with the aim of stopping the extinction of endangered species. The event is an opportunity to get in tune with nature and be part of a national effort to track how everyday Australian birds are faring. Over 88,000 people participated in the event last year and counted almost 3.4 million birds and the organisers are expecting it to be bigger this year with over 100,000 Australians likely to take part. For more information and to download the app visit: www.aussiebirdcount.org.au/
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NZ tour planner still living the dream
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hen occupational therapist Marina Hanger was asked to design a series of wilderness and adventure programs for people with visual impairments, she had no idea it would one day lead to her running her own tourism business, delivering tailored travel for all abilities. After 30 years as an OT working with people with a wide range of disabilities, Hanger saw an opportunity to support people with disabilities and older people wanting to enjoy the adventure of travel, and launched Ability Adventures. That was in 2008 and looking back, it was one of the best decisions in her life, she told Link.
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As a tour planner, she gets to apply her extensive OT knowledge on creating tailored accessible tours and disability travel services. “I love the fact that I get to break down the barriers that prevent people from experiencing all that New Zealand has to offer,” she said. As many of the tours she designs involve families with one member who has a disability or groups of people with different levels of impairment, finding things that everyone can enjoy together is an important part of creating something memorable for everyone. “You should always be testing your limits, or you will never know
what you are capable of.” And Hanger is always on the lookout for new ways for people to experience New Zealand. With the recent closing of international borders creating a higher demand for home-grown holidays, the choices for domestic travel have exploded in all the regions. Whilst it’s solely the locals enjoying all that’s on offer right now, when trans-Tasman borders reopen, Australian travellers will also be able to experience New Zealand in new and exciting ways. “I’m really excited about how much more there is to experience here. I can’t wait to share the country I love again with our Aussie neighbours.”
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Get ready to explore remote locations
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pportunities for people with disability to comfortably explore some of Australia’s most remote locations have just moved one step closer. As part of federally funded interactive learning program, NDIS Success, the Community Business Bureau has announced the first round of successful applicants to receive up to six months of direct business support. It means greater support for Aboriginal and regional communities and the creation of a national wellness hub. This direct business consulting opportunity will help organisations take what they’ve learned through CBB webinar series and apply that knowledge to advance a number of projects CBB Business Services general manager, Jane Arnott said. “We have been overwhelmed by the interest received during our first round of NDIS Success from small to medium organisations across Australia wanting to adapt and scale services, as well as larger
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organisations wanting to fast-track their efforts to deliver on the needs of Australians living with disability. Those who successfully completed the program were invited to apply for direct business consulting support to help them take their ideas to the next step of development, and the many applications we received showcased ingenuity, commitment and innovation at its finest.” A round one recipient was Austour. According to general manager Glenda Ashton, the organisation planned to use the mentoring opportunity to explore expansion of its current tour operations so people living with disability could experience some of the nation’s local and remote destinations. “Australia has arguably some of the most magnificent natural wonders on the planet, and we want to use accessible all-terrain vehicles specifically designed for adult wheelchair users, so they can comfortably explore Uluru and other outback destinations which, until
now, would not have been easily accessible,” she said. “We are also keen to explore offering short break tours in regional destinations for adults living with physical and intellectual disabilities who want to see the most remote parts of this country but until now have had to miss out because the support they need to enjoy a holiday is just not easily accessed.” According to Arnott, the CBB team has helped hundreds of Australian service providers operate successfully in the NDIS environment and will draw on that experience to work with round one winners to develop initiatives to address a number of critical service and support gaps which will ultimately benefit people with disability. Round two registrations for NDIS Success are now open for organisations already providing disability services keen to expand as well as organisations in an associated field wanting to move into the disability sector.
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Link to...Leisure and Travel
Register now for the MS Gong Ride
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he introduction of the MS Gong Ride Virtual in 2020 is an opportunity to get involved, show support and ride for MS from anywhere in Australia. Simply sign up, choose one of eight distances and commit to go the distance this October! Registration is free. Whether beginners, amateurs or seasoned professionals you are encouraged to ride from wherever you live, solo or united, in the fight against MS. All you need is a bike and a phone to take part. With no additional equipment needed, whether outside, or on a stationary bike indoors, the challenge is free and an opportunity to come together and show support for Australians living with MS. For the past 39 years, thousands of cyclists have taken on the challenging and scenic ride from Sydney to Wollongong, to raise vital funds for people living with multiple sclerosis. MS CEO John Blewonski who launched the inception of the virtual event said it is usually a sell-out event, and people travelled from all over Australia and internationally to take part in this iconic ride. “This year, no one will miss out. Wherever you are, you too can take part and fundraise to make sure every person facing MS can live well and receive the support they need.” “With free registration, there has never been a better
opportunity for riders to challenge themselves and continue the fight against MS this October, crossing the finish line from wherever they are,” he said. MS is the most common neurological disease for young Australians, with over 25,000 Australians living with the disease. For more information: www.msgongride.org.au
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SEE U SOON – now open! ENQUIRE TODAY 1800 247 365 | apartments@ucity.com.au 43 Franklin Street, Adelaide SA 5000 ucity.com.au AN INNOVATION OF
UNITING COMMUNITIES
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August 2020
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Link to...Accommodation
Exercise psychologist Elise Reddicliffe works with Andrew Jamieson at the Active Gym
Exterior shot of the new facility
First fully accessible accommodation facility opens in Queensland
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he new Spinal Life Healthy Living Centre in Cairns that offers fully-accessible accommodation, therapies and services for people with a physical disability, including spinal cord damage, is the first facility of its kind in Queensland and regional Australia. In addition to accessible accommodation options for holiday, transitional and rehabilitation stays, the centre also provides occupational therapy, physiotherapy, hydrotherapy, exercise physiology and NDIS support coordination services. There is an accessible gym and hydro pool, a skills practice area for wheelchair users and other mobility devices and an assistive technology room where guests can trial the latest devices. There is an accessible community café inside the centre. The centre’s team also work with
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residents of Far North Queensland to provide specialist personal support at home for assistance with daily routines. Spinal Life Australia has drawn upon more than 60 years of experience supporting people with spinal cord damage and extensive collaboration with the Cairns community to provide a purposebuilt facility that accommodates the unique needs of people with a physical disability. “It is rare to find such a diverse range of specialist disability services and facilities in the one location, especially in regional Australia,” CEO Mark Townend told Link. “The centre is uniquely positioned to go above and beyond to support the needs of accommodation for guests by providing access to allied health therapies, personal support
workers and the accessible gym and hydro pool during their stay,” he said. All therapies and services offered at the Healthy Living Centre are NDISregistered and can be covered by a participant’s plan. The centre also offers NDIS-funded accommodation packages for participants and accommodates guests supported by other funding bodies, as well as guests who are self-funded. The facility opened earlier this year but an opening ceremony in April was cancelled due to COVID19 restrictions, however another is scheduled for later this year. All services and accommodation options are open to residents of Far North Queensland and visitors from around Australia. For more information, phone 1300 774 625 or go to: enquiries@spinal.com.au
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Link to...Accommodation
Kris and John Thielmans enjoy the view of Cairns Esplanade
WE DELIVER FREEDOM YOU CHOOSE THE DESTINATION
1800 672 437 Contact us today for an obligation free quote & demo! Freedom Motors Australia provides the safest modification on the market when it comes to Wheelchair Accessible Vehicles.
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Available in various different car models (IE: KIA Carnival, VW Multivan, VW Caddy etc) and modification styles (Passenger, Family, Self Drive etc). We guarantee there will be a design and vehicle to suit your needs!
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August 2020
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Link to...Sports Leisure and Travel
Jayden the Tiger Warrior
Fiction with Friends building social links for children
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new program is now available to help children with developmental disabilities build social skills and confidence from home. Gateways Support Services occupational therapist, Ben Jaap and his team were brainstorming ideas to continue to engage kids in group activities online in a fun and meaningful way. That’s when he came up with the idea of ‘Fiction with Friends’, a creative story writing program delivered via Zoom. The six-week program guides small groups of children aged 7-11 years to work together to write, illustrate and record their very own story. “This group really is not run by me, it’s run by the kids. I'm just there to reinforce the social skills and put the book together. They are the ones who create the characters, their look, their character back story, and how they all come together to sort out some conflict,” Jaap told Link.
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Across six sessions children use social thinking concepts such as ‘The Group Plan’, ‘Hidden Rules – Expected and Unexpected Behaviours’, ‘Flexible and Stuck Thinking’ and ‘Sharing an Imagination’ to get to know one another and create a unique and personal story in groups of three children and one occupational therapist. Point Cook grandmother of 11-year-old participant, Jayden, said the program has sparked never before seen confidence, imagination and collaborative skills in her grandson. “Jayden has never wanted to work with others on a project but really enjoyed this process. He has now started to draw more and create more characters,” she said. “He is more open to sharing his ideas and talking about his characters of interest.’ With the program running completely online, Jayden, who has been diagnosed with autism spectrum disorder, intellectual disability and global developmental delay, feels
more secure and relaxed as he can participate from his home. According to Jaap, as well as having a great time and getting to know their peers, there were other positive effects from the program, especially changes to the kids’ confidence and respect for one another. “They started the group either shy or unsure about their ideas, or talking over others to make their ideas heard, but by the end of the group they were all working together and encouraging each other,” he said. “They all end up feeling comfortable with doing that after a couple of sessions, resulting in a group that is respectful of each other and proud of what they have created together.” At the end of the program, each child also receives a physical copy of the finished book to keep, a material memory of their story-creating adventures. For more information visit the Gateways Support Services website.
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Link to...Employment
F
or 13 year old Elliott, the work of Living My Way has gone a long way when it comes to supporting his day-to-day living. Elliott was born with Down syndrome, and if navigating the world with his impairment didn’t bring enough challenges, he received a second diagnosis of autism at a young age. Before finding the services of Living My Way, Elliott’s mother Lisa said she felt she was spending all her time either being hands on in Elliott’s care or was looking after the subsequent administration, but now feels like she’s able to free up more time for the rest of her family. “Living My Way has helped us immensely because it allows me to work part time, and I can do other things for my other children and not have to worry about bills being paid,” she said. Elliott has been a Member of Living My Way since 2017, undertaking
a Plan Management and support to employ their own support workers through the NDIS. “We needed to find a provider and we wanted to be plan managed so we didn’t have to do it all on our own anymore. Someone had mentioned Living My Way to us and from our research they were by far the best plan management service we found,” Lisa said. On behalf of Elliott, Lisa now employs four main support workers, with Living My Way acting as the middleman. The organisation aided in the recruitment, performed the necessary NDIS mandatory screening, provided employment contracts and on-boarded them appropriately. Living My Way further assists in processing the payroll, pays associated costs and ensures Elliott meets his ATO employer responsibilities, including paying superannuation and complete all his reporting for the NDIS.
LIVE YOUR WAY • Employ your own Support Workers • Plan Management • Support Coordination • Occupational Therapy Plus More...
WE CAN HELP YOU TO ACHIEVE YOUR GOALS
02 8525 4000 | www.livingmyway.org.au 28 Years’ Experience | Not-for-profit | NDIS Registered
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Link to...News
National Youth Disability Summit
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he Children & Young People with Disability Australia (CYDA) inaugural National Youth Disability Summit will be held from September 29 – October 3, 2020. The online event will be an opportunity for young people with disability to get together and discuss their experiences and issues they are passionate about. The summit is free for all young people with disability to attend, and given the ongoing complications from the COVID-19 pandemic, this year it will take place entirely online. It has been co-designed by young people with disability, for young people with disability with a Co-Design Committee established, comprising 20 young people with disability from around Australia. The committee has identified five key themes which will guide each of
the five days of the event: • Education • Employment • Mental health • The NDIS and housing • Access, awareness and inclusion. The first four of these topics will
be covered on dedicated ‘youth autonomous’ days, specifically for young people with disability to hear from, learn from and connect with other young people with disability from around Australia. Thursday October 1 will be an ‘Open Day’ where policy- and decision makers, nonyoung people with disability, advocacy organisations and the wider community will consider the theme of ‘Awareness, Access and Inclusion’. This will be a unique opportunity for the wider community to hear from a range of young people with disability speaking about issues they care about. Anyone interested to attend the summit (including the Open Day) are encouraged to register their interest at: cydayouth.events. The full program will be announced soon.
Do you use a Motorised Mobility Device?
I
f the answer is YES would you consider participating in a government sponsored research project about motorised mobility devices (MMDs)? The University of Wollongong and Assistive Technology Suppliers Australia (ATSA) are collaborating on a project on everyday mobility and motorised technologies. The research aim is to improve the life for those reliant on MMDs by better understanding their everyday mobility experiences. If you use a MMD you are invited to complete a short survey. The survey aim is to collect insights into how you see a future of inclusion drawing on the experiences of being out and about.
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The survey is available on this link: Qualitative Survey and Invitation to Participate. Any information you supply will be de-identified and your privacy will be protected. For those participating in a follow up conversation please provide your contact details. A $50 shopping voucher will be given to those who choose to participate. If you have trouble accessing the survey, or would like further information, email Dr Theresa Harada at the University of Wollongong: tharada@uow.edu.au or phone: 0423 383 113 and leave a message. You can read more about the research here: www.letsmovetogether.com.au/.
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In Dubai next to Sheik Al-Maktoum’s Merc
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eg Wade knows more about horses than most people on the planet. She is a four times national Australian endurance horse racing champion. She has also bred endurance horses for over 30 years, selling them to buyers all over the world. But following an accident that left her in a coma, she's had to apply her determination to a whole different set of problems. One of those has been how to stay mobile. Over the last 10 years, portable mobility scooters have been a product on the rise. Small and highly portable, they can be folded for transportation in a car boot or aircraft.
Wade got a Luggie scooter in 2016, and instantly it re-opened a slew of options she thought she'd lost forever. Unobtrusive enough to take in to a café it is also sturdy, for expeditions to many countries including France, Slovakia and the UK. She speaks fondly of her travels to the United Arab Emirates with her scooter. “The country has an understanding for people with mobility issues”, she said. And is one of the main countries she exports her horses to. Never particularly drawn to team sports, she tried her hand at cross-country skiing and endurance
kayaking, before picking up endurance horse racing at age 28. The races can involve anywhere up to 160km of travel in a day and sometimes last multiple days. “I liked being out there alone with the horse,” she said. “First you train that horse, build a bond and a trust, then you race. You are the brains, metering out its energy because the horse doesn't know how long the race is, only you do”. There's happiness in Meg’s voice when she talks about her past champion success and wistfulness, but also a fierce pride in what has come after, her survival, determination and continued business success in breeding top horses. As of 2020, her farm to the north of Holbruck in NSW has about 100 horses at any one time and employs up to five people. With horses
Unpack, Unfold and Go This portable fold up scooter gives you the convenience and freedom to get around. 8 Luggie models to choose from including: • Wide track version for more stability • Soft suspension and pneumatic tyres for a softer, smoother ride. Online sales & free delivery
1300 622 633
www.scootersAus.com.au
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Link to...Employment
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Rebecca – New Haven Farm Home
his year began well enough for NOVA Employment. January 2020 gave NOVA its best first month results in history, February also broke all placement records and although there were COVID clouds on the horizon, employers were keen to tap into its pool of talented candidates. There was a minor dip in March, down 4 per cent overall, and then came April…… which was to become a 30-day train wreck for the organisation. Decades of work came to a thundering halt as workers with 20 or more years of employment lost their jobs in an avalanche of redundancy, business closures, stand downs and reduced hours, NOVA CEO Martin Wren told Link. “Staff, workers, employers and their families wept.” But JobKeeper steadied the ship, and while no one was optimistic about hiring, the haemorrhage slowed and NOVA began to see some new job starts. Staff began to use their smarts to find and create new roles. “Some
worked as infection control teams disinfecting and deep cleaning for invirus prevention. Others turned their expertise and equipment to make PPE or reincarnated their restaurants as take-away,” he said. By the end of June NOVA was back on its feet with good placement numbers and job losses down to a trickle. Wren said the most inspiring part of the whole COVID-19 disaster has been the attitude and ‘cando’ displayed by its job seekers when it came to learning Zoom or working from home. “Working from home has opened up heaps of new employment opportunities.” Learned resilience is a fact of life for many people with disability and this has never been more a more valuable attribute than now. “COVID-19 is a terrible, tragic disaster that took my Mother’s life, but we can get by and continue to find great employment opportunities. Determination, resilience and can-do will see us through. Collective chins up!”
COPING WITH COVID-19 S ince 1987 Martin Wren has been helping people with a disability find decent jobs, first as a vocational trainer for NSW TAFE and for the last 30 years as CEO of NOVA Employment, a Sydney/ Southern Highlands Competitive Integrated Employment (CIE) program. He told Link he was absolutely convinced of the work readiness of two members of his TAFE class in the 90s, and made an appointment with a local wholesaler who was recruiting for pick and pack roles in a medium sized warehouse/ distribution centre. “We practised how we could answer any questions, polished their resumes and generally made sure they looked the part. “Acting as chauffeur and support worker I made sure my guys were as ready as could be and approached what passed for reception. I told the receptionist who we were and asked
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for the person I thought was the decision maker.” “How can I help” he asked, “to which I replied with words to the effect: “this is me, this is David and this is Joe (names changed for privacy) and we’d like to talk to you about employment as we read your advertisement in the local paper and believe the role has been made for these men”. There was a bit more to it but in short order our interviewer called the meeting to a halt and said, “Wait here a bit, I’ll get the boss.” According to Wren he returned a minute later, followed by a man in a suit, grinning from ear to ear. First chap said, ‘tell us what you want again?’ I did and they laughed as did the receptionist, and we left, red faced and with our collective tails between our legs. “It was 1990 and this whole competitive employment thing
was still a novelty. David and Joe both have Down syndrome and the general view at the time saw such persons, not as valued colleagues but rather, as either objects of pity or burdens of charity. Not such an auspicious start but that was 30 years ago and a very different world. “And this is where I found myself at the end of 2019 riding a wave of success with 100 new workers starting great jobs in a single month, 15 per cent were apprentices or undertaking traineeships.” Wren is also the creator of Focusonability, an international short film festival and is working on improving outcomes for individuals ‘on the spectrum’ as well as a new venture promoting disability in the arts and other non-traditional vocational pathways. He is the author of ‘The 10 Demandments – How to improve employment services for people with disability’.
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Link to...Employment
Turn your caring role into a career N
SW Carers are turning personal experience into formal qualifications with an innovative TAFE NSW skills recognition program, Carer to Career. The program gives people who care for a family member, friend or neighbour with disability, mental health, ageing or complex health and wellbeing needs to have their personal experience recognised as progress towards formal qualifications. One of the recent graduates is Deborah Woodley who has been a carer for her 19-year-old daughter who has severe epilepsy and a moderate intellectual disability. Woodley is now using the skills she developed in her personal life to kickstart a career as a care professional. “I have lived experience as a carer and volunteering within the disability community which has given me the
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Care graduate Deborah Woodley
skills I need to work in the industry. The TAFE NSW Carer to Career program allowed me to legitimise my skills and give me the qualifications I need to be able to pursue a career in what I am good at. “There is a need for people in the industry with genuine care and knowledge and I would like to be able to put my skills in a place where it is valued. I’ve become passionate about the industry because I see so many gaps in services and I want to make a difference,” she said. TAFE NSW Upskilling Carers program coordinator Michelle Meachem said Carer to Career was designed as a flexible learning program for carers to access when, where and how it suits them to meet their individual learning needs. “There has been an excellent response to the program with over 360 carers registered since it was
launched in 2019,” Meachem said. “By developing specific abilities Carer to Career equips carers with job-ready skills which can be applied to a range of roles in the community services sector, as well as other industries, depending on the qualifications attained.” ”A number of carers have gained a Certificate III in Individual Support using a customised recognition of prior learning process and others have received specific skills sets in support coordination to support employment,” she said. TAFE NSW is now accepting new participants interested in studying during Semester 2. Participants are guided through a self-assessment and skills matching process to determine the best pathway for each individual. Visit www.tafensw.edu.au or phone: 131 601 for more information.
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Link to...Employment
Do you have disability? Has someone hurt you, treated you badly or taken advantage of you?
New website to prepare those with autism spectrum for work
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urtin University has developed a new online platform to help young people on the autism spectrum plan and prepare for their working life. Curtin’s School of Occupational Therapy and Social Work associate professor, Marina Ciccarelli collaborated with Autism CRC on the myWAY Employability website, which aims to address employment challenges faced by people on the autism spectrum, more than one third in Australia are without work, a situation which may worsen due to the COVID pandemic. The website details: How does the myWAY Employability online platform can help people with autism gain employment and further their education? Why do people on the autism spectrum often struggle to gain employment? What research and trials were conducted in the development of this website? What features of the website make it a fun and personalised experience for individuals using it?
Free, independent, confidential counselling and advocacy support is available. Call the National Counselling and Referral Service on
1800 421 468
For more information visit dss.gov.au/disability-royalcommission-support Support is here for you. NDAP
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National Disability Advocacy Program
August 2020
Link to...News
Are you tuned into Vision Australia Radio? If not this is what you are missing… …A new inclusive virtual tour of the National Portrait Gallery that includes a transcript of the podcast for the deaf community. The presenter, Peter Greco, was previously a Link Disability cover boy. Link to article: www.radio. visionaustralia.org/about-us/radionews/npg-partners-aaa-accessibletour LEAP Interview Studio 1 is presented by Matthew Layton, a Brit with over 20 years under his belt in UK radio, who has lived with low vision since birth. When the new program was announced earlier this year Layton said: “Vision Australia has given me my dream job: to get the voices of as many blind and low vision people on the radio as possible. My mission is to get people to tell their stories in their own way – as fully rounded humans with emotions, passions and even, shock horror, every now and again, a sense of humour.” Listener interactions are encouraged via the following methods: Text or call: 04 500 78834 - 04 500 STUDIO Email: studio1@visionaustralia.org Twitter: www.twitter.com/ varadionetwork and www.twitter.com/ whingeingpom For a full list of Studio 1 podcasts visit: varstudio1.podbeam.com The Vision Australia Radio Network operates in Adelaide, Perth and Victoria to address the information needs of people who are blind, have low vision or a print disability. The service is delivered by 800+ volunteers nationally with the support of a small team of dedicated staff. The VAR Network comprises 15 radio services in Melbourne, Adelaide and Perth and seven services in regional Victoria. There are also five digital radio services – VA Radio simulcast service in Melbourne,
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Adelaide and Perth as well as the IRIS digital radio services in Melbourne and Adelaide. An estimated 176,000 people aged 15+ listen to VAR nationally at some time in a week and an estimated 701,000 people aged 15+ listen to Vision Australia Radio nationally at some time in a month. Programs include readings from newspapers, magazines and books alongside interviews and light entertainment as well as specialist
programs on new technology, gardening, finance, travel, arts, wine and more. A variety of programs, including Focal Point, Talking Vision, Link On-Air, Talking Tech, Hear This and the Seeing Eye Dogs Show are also available as podcasts to stream online or download via the Vision Australia Radio website: www.radio.visionaustralia.org/ podcasts. Listen live to Melbourne and Adelaide at: www.varadio.org
VAR Melbourne staffer Sam
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Link to...News
Western Australia calls for an Office of Disability
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A Minister for Disability Services, Stephen Dawson and the Department of Communities has started community engagement about the establishment of an Office of Disability. It is intended to champion the rights of people with disability and provide strategic disability leadership and expertise across the Department of Communities, the WA Government and the disability sector. The State Government is keen to hear from people with disability, their families, carers, disability support organisations and the broader community, particularly about what the functions and role of an Office of Disability should be. State Manager Julie Waylen said NDS has advocated for the establishment of an Office with specialist disability expertise within the WA Department of
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Communities and encourages members and people with disability and their families to participate in the community engagement. This is to ensure that the Office is established to better co-ordinate and advance strategic disability reforms to maximise the benefit for people with disability, their families, carers and the sector. Have your say before September
6 2020. Visit the Department of Communities website to access the discussion paper, information sheet and feedback form available in a range of formats. The Department of Communities will also host a number of community engagement sessions across Western Australia. Register to attend a community engagement session to share your ideas.
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Manufacturer weathers the COVID storm Australian Apparel owner Stephen Long
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hen the initial threat of a COVID-19 outbreak hit, disability service providers across the nation were scrambling to source personal protective equipment to keep their staff and clients safe. So were many other sectors, which made finding sufficient quantities of PPE almost impossible. So when Gateways Support Services CEO Stephanie Gunn heard that a local school uniform manufacturer had made up some PPE gowns for a Belmont medical clinic, it sparked an idea. Gunn contacted North Geelong’s Australian Apparel to ask if they were able to supply PPE gowns to a network of disability service providers Australia wide. According to Australian Apparel
owner Stephen Long, that phone call saved his business. “With schools and retailers closing, our business was starting to go down. We’d be closed if it wasn’t for this. They saved us,” Long said. The 26 year old manufacturing business shifted focus overnight, calling suppliers to source the special Teflon-coated microfibre required to make the PPE gowns and working with disability service providers to arrange distribution in batches and ensure everyone who needed the gowns began to receive them within four weeks. “It’s changed our whole business and our structure of doing things,” he said. “We’ve even had to hire more staff and are definitely one of the lucky ones.”
Australian Apparel has so far supplied more than 4500 gowns to 16 disability service providers across Victoria, South Australia, New South Wales and Western Australia, with more orders continuing to roll in. Long said the new direction is likely be permanent with the business currently fulfilling orders for some 2000 masks for providers in Victoria and NSW. According to Gunn Australian Apparel’s flexibility and hard work has made an enormous difference to the ability of disability service providers to prepare for potential outbreaks. “‘On behalf of the COVID-19 coordination group network, I want to extend our gratitude for helping ease the challenges we all faced at this difficult time.”
Human Rights Commissions Covid-19 guidelines
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he Australian Human Rights Commission has published a policy guideline to assist persons with a disability during Covid-19. Policy responses to the SarsCoV-2 virus and associated disease, Covid-19, including isolation and social distancing measures, may in certain circumstances have a greater impact on some people with
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disability, particularly those who rely on carers and other support people, and those who live or work in highrisk environments. Treatment protocols for medical practitioners, health and disability support workers may, in certain circumstances, also have the potential to discriminate against people with disability. This occurs when unwarranted assumptions are
made about people with disability or when their needs and preferences are not adequately taken into account. This discrimination may be unintentional and undertaken unknowingly. For details go to www. humanrights.gov.au/our-work/ disability-rights/publications/ guidelines-rights-people-disabilityhealth-and-disability
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Link to...Support Services
Counselling and advocacy support for people with disability
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ree and independent counselling and advocacy support is available for people with disability who have experienced violence, abuse, neglect and exploitation, as well as their families, and people engaging with the Disability Royal Commission. Many people say that counselling and advocacy has helped them to: • Make choices about telling their story to the Disability Royal Commission • Get support for their emotional wellbeing • Find out what is needed to understand and participate in a Royal Commission • Find other practical supports available to you including legal and financial support. COUNSELLING SUPPORT Counselling support is available for people with disability, family members, carers, advocates or support workers. A counsellor can support you to talk about your feelings and emotions in a safe space. You do not have to take part in the Disability Royal Commission to use this emotional support – it is here for you when you need it. ADVOCACY SUPPORT Advocacy support is for people with disability (or family members or carers acting on their behalf) who may have difficulty in communicating
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or understanding how to engage with the Disability Royal Commission. An advocate can help you tell your story, protect your rights, and access other supports. HOW TO FIND SUPPORT You can contact the National Counselling and Referral Service on 1800 421 468 for counselling support, or ask to be connected to a counsellor or advocate near you. It is available 9am to 6pm weekdays, and 9am to 5pm weekends and national public holidays. If you are currently experiencing any form of violence or abuse, or you are concerned for your or someone else’s safety, call 000 immediately. SUPPORT IN OTHER LANGUAGES If you need counselling or advocacy support in another language, you can use the Translating and Interpreting Service (TIS National) free of charge. You can call: • National Counselling and Referral Service on 1800 421 468 and ask for an interpreter, OR • TIS National on 131 450 and ask to be connected to the National Counselling and Referral Service on 1800 421 468. A fact sheet is available in Arabic, Chinese, Farsi, French, Greek, Hindi, Italian, Spanish, Turkish, Urdu and Vietnamese. Visit www.dss.gov.au/ disability-royal-commission-support.
SUPPORT FOR ABORIGINAL AND TORRES STRAIT ISLANDER PEOPLE Culturally appropriate support is available for Aboriginal and Torres Strait Islander people with disability and their families. Support in some areas is provided by Aboriginal and Torres Strait Islander organisations. Counsellors and advocates can arrange translations and interpreting for people who need help in another language. Call the National Counselling and Referral Service on 1800 421 468 for counselling support or ask them to connect you to a counsellor or advocate near you. ABOUT THE DISABILITY ROYAL COMMISSION The Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability (Disability Royal Commission) will run for three years until 2022. For information about the work of the Disability Royal Commission, including attending public hearings or making a submission, call 1800 517 199 or visit disability. royalcommission.gov.au. MORE INFORMATION You can find more Information about the support services in a range of accessible formats including Easy Read, Auslan and Braille at www.dss. gov.au/disability-royal-commissionsupport.
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Link to...Happenings
Accessible Arts – online events and workshops
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ccessible Arts have launched a new online workshop called Delivering Accessible Online Events. It’s all about helping arts and cultural organisation improve the accessibility and inclusiveness of their online performances, exhibitions, rehearsals and creative developments as well their webinars, online panel
discussions, online meetings and social media. The stand-alone session is 1.5 hours and recurs on the first Wednesday of every month starting from September. And there’s a 2-for-1 introductory offer so you can bring a friend for FREE! Places are limited. BOOK NOW!: https://www.aarts. net.au/delivering-accessible-online-
events/ And don’t forget our regular Disability Confidence Training workshops. We’ve got places available in our 14 Oct, 18 Nov and 16 Dec workshops. And our 2-for-1 offer is still available. FIND OUT MORE: www.aarts.net.au/access/disabilityinclusion-training/
What's On September 2020
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National Stroke Week – National Stroke Foundation Australia Wide Stroke Week 2019 was all about celebrating everyday Aussies who can save a life just by knowing the F.A.S.T. signs of stroke. We were thrilled to see so many of you embrace the campaign and raise awareness.
Spinal Cord Injury Awareness Week – Independence Australia Australia Wide This national week is an initiative of the Australian Spinal Injury Alliance, which represents eight of the country’s largest spinal cord injury support organisations including SCIA.
Online NDIS Informal Peer Support Online Mission Australia NDIS Cairns Region is conducting informal monthly peer support activities for participants, people with disability, carers.
2020 AFTM Queensland Outsider Art Awards Online Exhibition Showcasing hundreds of entries from Queensland artists and community art groups, keep an eye on our website, social media and upcoming newsletters for updates on this exciting exhibition.
Meeting Place Forum Online | Australia Wide Save the date for Australia’s national forum on arts, culture and disability Australia’s leading national forum on arts, culture and disability, Meeting Place, will be held online for the first time on 15-16 September 2020.
Perth Match Up WA We're taking Nest on the road to give disability housing providers and people with disability (plus their carers and support network) the chance to meet in person and chat about what's available and what they need and want in a home.
August 2020
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sagroup
enterprises
Discovering my options, working with purpose.
creative
REPACK customised packaging services
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August 2020
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Link to...Happenings
NATIONAL DISABILITY AWARDS
N
ominations are open for The National Awards for Disability Leadership 2020. The awards acknowledge the work undertaken to support the community through the pandemic, bushfires and other major disasters. Focus a nomination on work done to support the disability community through these challenging times. There are seven categories, reflecting what is important to people with disability. These include: • The Arts
• Change Making
• Rights Activism
• Innovation
• Social Impact
• Inclusion
• The Lesley Hall Award for Lifetime Achievement
NOMINATE A LEADER The National Awards for Disability Leadership will be presented during a global captioned webcast on December 3, 2020 from 1 to 2.30 pm AEDT. Start planning your watch party now! Got a device? Have access to the internet? Then you can join us via our YouTube webcast (via the Disability Leadership Institute YouTube channel). Get involved on social media using #DisabilityAwards 2020 and check out the FAQ hosting a Watch Party.
WANT TO KNOW MORE ABOUT LEADERSHIP AND TECHNOLOGY?
MEETING PLACE ARTS FORUM SHOWING ONLINE
A
national forum on arts, culture and disability, Meeting Place, will be held online for the first time on September 15-16, 2020. There will be a mix of panel discussions, keynote speakers, workshops and artistic showcases centred on a ‘Creating Space’ theme. The annual forum is hosted by Arts Access Australia the national peak body responsible for advancing
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August 2020
Then Immersion+ 2020, NEC Australia’s free visual symposium is for you. Paralympian Dylan Alcott was a keynote speaker and his “Mainstreaming Disabilities” Vimeo video link is here: www.vimeo. com/442187545
equity in the arts for people who are deaf or have a disability. Meeting Place 2020 was scheduled to take place at Brisbane’s Undercover Artist Festival in August, which has been rescheduled to a virtual showcase in December, 2020. Tickets to Meeting Place 2020 are now on sale. Register at: www.meetingplaceforum. org/register
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Link to...Happenings
CARRIAGEWORKS REOPENS IN SYDNEY H ere is another spring opening with some stunning visual art installations by leading Australian and international artists at the 22nd Biennale of Sydney, unveiled at Carriageworks and accessible too! People who hold a valid Companion Card will be issued a complimentary ticket when they support a ticketholder with a disability or frailty. To book accessible seats or
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a wheelchair PH: 02 8571 9100. Up to two accompanying patrons can buy tickets in the accessible seating area. There is an access ramp leading to the main entrance and accessible parking is available. Service animals are welcome throughout the precinct however Carriageworks does not have a hearing loop. For more information call: +61 2 8571 9099.
August 2020
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So everyone can thrive We want to help every Australian build a connected future, including those who have difficulty using a standard home phone. Telstra’s Disability Equipment Program offers a range of solutions to support customers who are older or have a disability. Visit telstra.com/disability, or call our Hotline 1800 068 424 (Voice), 133 677 (TTY).